#1575 Severed Pancreas
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John, 40, shares his family’s deep autoimmune history and his 11-year-old daughter’s new T1D diagnosis, plus his personal experience with GLP-1 meds.
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Scott Benner 0:00
Hello friends, and welcome back to another episode of The Juicebox Podcast.
John 0:15
I am John. I'm from San Antonio, Texas, and I am the parent of a type 111 year old girl.
Scott Benner 0:27
If you or a loved one is newly diagnosed with type one diabetes and you're seeking a clear, practical perspective, check out the bold beginning series on the Juicebox Podcast. It's hosted by myself and Jenny Smith, an experienced diabetes educator with over 35 years of personal insight into type one, our series cuts through the medical jargon and delivers straightforward answers to your most pressing questions. You'll gain insight from real patients and caregivers and find practical advice to help you confidently navigate life with type one. You can start your journey informed and empowered with the Juicebox Podcast, the bold beginning series, and all of the collections in the Juicebox Podcast are available in your audio app and at Juicebox podcast.com in the menu. Please don't forget that nothing you hear on the Juicebox Podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin,
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John 3:01
I am John. I'm from San Antonio, Texas, and I am the parent of a type 111, year old girl, 11 year old. Do you have any other kids? I do. I have a almost eight year old as well. Oh, wow,
Scott Benner 3:14
eight and 1111. Year old has type one and she right. Was diagnosed. How old
John 3:18
she was diagnosed last year. Shoot, I think we're about six months in. It was October, October 15 of last year. It's
Scott Benner 3:27
only been about six months. Yeah. Refresh, still, yeah, this is a good conversation. Then I'm going to enjoy this. You won't. It'll be a horrible, it'll be a horrible turning up of emotions that you're not really ready to deal with yet. But I'm going to be like, awesome. What a great podcast. Yeah, tell me a little bit about your extended family. Is there other type one, other autoimmune? Is there any autoimmune in your family?
John 3:52
I came prepared, because I hear you ask this a lot. Thank you. So no type one. We kind of did some digging. My wife and I, she had a grandmother with type one and her mother. So my mother in law has Viti Lago, which is autoimmune. My wife has PCOS. My wife has hypothyroidism, and then on my side, we got a bunch of celiac and also some PCOS. I have some sisters with PCOS, so no type one, but a bunch of autoimmune from what we found after,
Scott Benner 4:24
after this, I thought you said the ground there was a grandmother. I'm sorry, yes, yes,
John 4:28
my wife's, my wife's grandmother had type one, correct? Okay,
Scott Benner 4:32
so what do you think the inclination is? Because you're not certainly the only person to say there's no type one in my family, but my wife's grandmother has it, like, Woody is that far enough away that you're like, that's not really
John 4:43
us. I think so, yeah, I think we know we're thinking, you know, our siblings, our parents, so, yeah, I think that's what it is. Probably,
Scott Benner 4:50
yeah, that's a misnomer for people. Yeah, it's like, it's like, if I was breeding puppies, and I was like, well, this puppy is from that, you know, two puppies. Way they're not related, true? That's true if you think of it that way. Yeah. Actually, you're related, just like two generations of banging. That's pretty close, yeah. So wait a minute, your wife has hypothyroidism, PCOS, yes, she have any trouble getting pregnant.
John 5:14
It did take us a little while. We didn't have to, you know, do any fertility, but I remember it, it took us, I think, longer than we thought it would. Would
Scott Benner 5:25
you mind if I asked you a question that I should be asking her? Sure, okay, her lady problems. Did they change drastically after giving birth?
John 5:35
She's still, I mean, you know, she's still, I think she still has the PCOS. I mean, no,
Scott Benner 5:41
no, she still has it. But like, John, you said, I think, like, that's not the way. I don't know how long you've been married man, but, like, don't give up that you're not sure. What I mean is, like, you know, frequent heavy periods, like, she had whatever she had going on prior. I don't know what she had going on prior. Maybe you can tell me, like, did it change or morph after giving
John 5:59
birth? Oh, I see, I see, yeah, no, that's still that. All that stuff still remains. Okay? She struggles
Scott Benner 6:06
with it, yeah? When your gyno says, Don't worry, if you have a baby, this will all be better. There's a thing they love to tell women, which I think is, yeah, crazy, but not true in our in our scenario, yeah, true in your scenario. Go make a baby, everything will get better. What is that like? Is that advice from the Old West? You know what I mean?
John 6:24
I think so. I think that. I think we did hear that too. It was almost like, Oh, it'll reset your system or something to that effect, yeah, not, not the
Scott Benner 6:31
case. A lot of things that you haven't found to be true in any aspect of life whatsoever. So far, right? Yeah, no, I hear you. Okay, so she's got those issues. You have the first your first is, you know, got 11 years old. How? How old are you guys?
John 6:44
I'm 40, and my wife is 37 so we're not too far apart.
Scott Benner 6:48
Okay, all right. So what's the first sign of the type one?
John 6:52
It was her hair was falling out. So my wife, you know, the brushes the hair in the morning, before school, she's gonna get some ready, and she's like, Man, I'm, I'm getting a lot of your hair is coming out in the brush, you know, notice it in the shower. And then, you know, we just took a good look at her, and we noticed that she was, she had lost weight. She was looking really thin. She was always thirsty and hungry. Later, she told us, oh, you know, I was drinking, you know, like, I'd take a water bottle to school and I'd be done before class even starts. Now, of course, she didn't sure they went to still after, but yeah, things like that. You know, I had to wake up three times to go to the bathroom at night again, which we didn't know, but she was experiencing so, yeah, there were lots of signs that, looking back now, we know what it was, but we had, we had no idea.
Scott Benner 7:39
Did it spark your wife to think hypothyroid at first? Because there's some overlapping stuff there with the hair loss, the weight stuff like that. I
John 7:47
don't think so. You should be honest. I remember her coming to me being like, Hey, I think I'm going to take her to the doctor, because, you know this, this is, this is concerning, and I'll be honest. We were like, yeah, maybe it's some sort of vitamin deficiency, or maybe she needs, you know, some sort of supplements, like, that's literally what we thought it was. But it was all mother intuition, because she said, I gotta take her. She was Something's off. And so, you know, she she took her in, and it was kind of strange. They didn't poke her. They didn't do a finger poke at the doctor, which I feel like would have answered our question. Well, hindsight and all you know, right, right? But they sent her for labs, and then we got a call the next day from a not our doctor, another doctor in the practice, which I thought was strange, and she sounded very flustered on the phone. She left both of us with voicemail because we were working. She was like, I need someone to call me back. Like, as soon as possible. Like, call me back. Please call me back. And so I get that, and you know, you start freaking out, and call and she said, You need to go get her and take her to the hospital right now. And we were like, Okay. And that pretty much started our journey towards this, this whole
Scott Benner 8:59
ordeal, John, did she say, I think she has type one diabetes, or did she just say, get her to the hospital?
John 9:04
She did. She said her blood sugar was 800 and, yeah. And of course, we don't, you know. We don't know. We're like, oh, well, you know, how bad is that? And she's
Scott Benner 9:14
like, that's almost 1000 way to go, kid, yeah, you don't, you don't know. Yeah, you don't know what you're talking about, right? As you're driving to that to that hospital, what's your feeling like she's in imminent danger or just, just the thing we have to handle
John 9:27
right now? So the doctor was like, you know? She was like, You should take her now. She was like, if this is my child, I would take her now. She was like, you know, she's okay, right? She's not in, she's not gonna die right this moment. So she, I guess she tried to reassure us that, but it was still pretty, like, urgent, like, you need to do this. I remember even because I think it was like noon, and I remember even thinking, you know, after we got the phone, we were like, well, could we maybe we'll just take her in the morning? Or, you know, we kind of downplayed it a little bit. But. Then we were like, You know what? We should listen to the recommendation, and we should go ahead and take her in. So I
Scott Benner 10:06
need one more second on that. You actually got off the phone, and you're like, we could probably do this tomorrow.
John 10:11
Yeah. No, no lie. We thought about it, like, okay, because I think, and again, this is a blur. I think she even mentioned, you know, we have a good endocrinologist we work with. I'll set you up with her. And, you know, we were even thinking, like, well, maybe we can just go see the endocrinologist and, you know, go go to them directly, instead of having to deal with the hospital and the weight and the mess. And, yeah, we have our other daughter. What are we gonna do with her? You know? So she was
Scott Benner 10:37
clear, like, go to the emergency room right now. She was, she was man, John, I got to imagine every doctor listening right now is like, Well, yeah, this is why we talk to you people like that, because you don't listen. Yes, yes, good. That's why everyone's story is like, Oh, they were so, like, aggressive about going to the hospital. And they're probably like, yeah, because you have no idea how many people just don't listen to us when we say that. I guess it's an interesting problem. I love that, all right, so, but you did go to the hospital?
John 11:02
Yes, yeah, we went to the hospital. My wife went and picked her up. I actually work closer to the hospital. They told us to take her to so we actually met there. We were on the phone. They called me right when they were on the way, and we were all talking, you know, on the speaker phone. And my daughter was, like, confused. She was like, Okay. She's like, I, you know, I feel she got a little nervous. Yeah? She Yeah. I think she got a little nervous. We know nothing about diabetes. So I was like, I think I even told her, Hey, maybe, you know, this is something where you can take a medicine and you'll be fine.
Scott Benner 11:32
It's just out there, like with the pixie dust. He's like, You know what? I'll probably, they'll probably just rub something on your arm, and this will be over soon.
John 11:39
Don't worry. Yes, so I, you know, felt horrible hours after saying that. Did
Scott Benner 11:44
you go back to her and say, Hey, sorry. I'll keep my mouth shut till I know what I'm talking about next time. Shoot,
John 11:49
shoot. I don't even think I did, but hindsight now I'm remembering that I said that. But now, I mean, it's, it's, it was she probably a shock? Yeah, she
Scott Benner 11:56
probably doesn't remember, you know, yeah, going from like, in the car, like, I don't know what the big deal is to the actual happening, right? Like, do you see the shift in her quickly, or are you more focused on what's happening to you? Like, like, What is your perspective in the hospital? You worried about her, you're worried about your wife, you're worried about being strong. Can you tell me what your focus was? This episode is brought to you by Omnipod. Would you ever buy a car without test driving it first? That's a big risk to take on a pretty large investment. You wouldn't do that, right? So why would you do it when it comes to choosing an insulin pump, most pumps come with a four year lock in period through the DME channel, and you don't even get to try it first. But not Omnipod five. Omnipod five is available exclusively through the pharmacy, which means it doesn't come with a typical four year DME lock in period. Plus you can get started with a free 30 day trial to be sure it's the right choice for you or your family. My daughter has been wearing an Omnipod every day for 17 years. Are you ready to give Omnipod five a try? Request your free Starter Kit today at my link, omnipod.com/juicebox Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox find my link in the show notes of this podcast player, or at Juicebox podcast.com you Today's episode is sponsored by a long term CGM that's going to help you to stay on top of your glucose readings the ever since 365 I'm talking, of course, about the world's first and only CGM that lasts for one year, one year, one CGM. Are you tired of those other CGM, the ones that give you all those problems that you didn't expect, knocking them off, false alerts not lasting as long as they're supposed to. If you're tired of those constant frustrations, use my link ever since cgm.com/juicebox, to learn more about the ever since 365 some of you may be able to experience the ever since 365 for as low as $199 for a full year. At my link, you'll find those details, and can learn about eligibility ever since cgm.com/juicebox check it out.
John 14:16
For for me, it was, it was all on once we were there, and she was there in the bed, and we're waiting on, you know, they put you in the triage, and they get you back there, and we're waiting there, and they poke her there, and I think, I think it was too high, it wouldn't register on their meter. And they told us that. So they were like, so that means it's over 600 you know, because ours goes up to 600 like they told us, and at that point, it's just, you're starting to increasingly worry, you know, because of the attention and the and the hospital staff, and this is part of what I wanted to say, we'll get to it. But we got pretty good care, I think. And so they, they were, they were good, and they were good to her, and they, you know, it's a children's hospital, so they have their way of talking to the kids. And explaining things, and she needed an IV. And I don't like an IV, and I feel like that would be scary for me as a 40 year old and for a 10 year old to
Scott Benner 15:09
get it. John, have you never had an IV? I have. It's
John 15:13
only been a few times I had to get a dental, a tooth removed one time, and they put me out. And it was, I don't know, I just have anxiety about about it, but you got an IV for a dental procedure. Yeah, I had a bad cavity, and they and I had to go to an oral surgeon to pull it. Oh, okay. And, yeah, and he was like, I'm gonna, I'm gonna put you out, you know. So because I was, I was stressing. I was, yeah, the dentist is not my thing.
Scott Benner 15:38
It must piss people off when they hear me say how relaxed I'm at the dentist's office. Oh no, yeah, I just love it there. It's so calm. You're like, oh gosh, the IV seemed like a big step to you.
John 15:50
Yes, that's when I think I you knew, like, Okay, this is, this is serious, like, this is not. Just take this and you're
Scott Benner 15:55
fine. Wow. How far is your understanding of diabetes come in such a short time? Do you think
John 16:00
so? I mean, you know, they're in that moment or since to now? No to now? Oh, okay, I think we are. We have learned a ton. Listening to this podcast has helped tremendously. We use the vernacular tug of war, crush it and catch it like it's a part of of, kind of how we manage. So I think we've come a long way. I still, and we're still not an expert. Just the other day, we were talking about bolusing for fat and protein, and I told my wife, I was like, this is, like, we're getting to, like, the next level stuff. I was like, I think we're pretty good at the basics now. Now we need to, like, fine tune this, like, next level stuff. Yeah, that is, like, the expert level.
Scott Benner 16:46
Well, I hope it makes you feel better to know that I'm not an expert at it. I don't know that anybody is, you know, right? Arden's on a steroid right now, and it just feels like we've been fighting with it for a week now, you know, so and I know what to do when I'm doing it, but it's, you know, sometimes you're just like, it's not enough, or you're sending so much insulin through the site, the site gets flooded, and it just doesn't work as well. And you're like, well, I could be doing this or that, and then the reality of life is like, you know what I mean? Like, yeah, if I said to her, like, let's change your pump every you know, I don't know, 36 hours while you're on steroids, she'd be like, okay, Sparky. Or, you know, like, Let's inject instead. Or she'd be like, why don't we just let it be a little high? Yeah, the reality like, creeps in a little bit. And in six months, if you're feel confident enough with foundational ideas that you're thinking like, well, let's try to level up a little bit here in six months. Man, that's awesome. Really, you know, I think it's fantastic. Do you think your wife has the same level of comfort as you
John 17:51
do? Yeah, I think so. Yeah. We usually do our best to to manage together and make decisions together. She does do all the changes, the CGM, changes in the in the pod changes, you know, she has more nimble, nimble hands, and so she does that. But I've been there, you know, we kind of do it as a team, so it's good to kind of be all all together in the same boat. You stand in the back here, leading, yeah, pretty much push the buttons, you know. So I'll be there controlling the phone and, okay, okay, stick it on. Okay, let me push the Let me push the button. Okay, here we go, you know. So,
Scott Benner 18:26
John, yeah, are you really not nimble? Or is that something? She's told you,
John 18:29
I'm a bigger guy, you know, and my hands are pretty big, gotcha. And I don't know that little pot is a little, I feel like, like, ham. You're just like, yeah, like, I drop it, or I'd put a crooked or I squish the little tape. I don't know,
Scott Benner 18:43
you're giving me an image of Godzilla trying to put on somebody's Dexcom for them.
John 18:49
Like, yeah, exactly. You know,
Scott Benner 18:53
are your hands huge? I mean, not
John 18:56
huge, but, you know, so I don't know. I mean, I could do it if I had to, but that's kind of been our routine. You know, we've, kind of, we have a little routine in
Scott Benner 19:05
place. Now, listen, I want to tell you something. I have pretty big hands. It does make simple things difficult, like, I often drop things that are, like, small, but you've done it before, right? Like you've tried or, yes, okay,
John 19:21
well, I've done some of it. I don't think I have done it. I don't think I've done a pod change.
Scott Benner 19:26
Is it outside of your comfort zone, beyond the big hands thing?
John 19:30
No. I mean, I could do it. Like I said, I've seen it enough times that I could do it. It's just, I think now it's, I think the beginning, it was a nervous thing, but I think now it's just, we're in the routine so much that it's just kind of, kind of how we do it.
Scott Benner 19:42
And your kids only 11, but Arden's 20. She's almost 21 I have to tell you the amount of times I've seen that kid with her pants half down or like, something like, I mean, it's so it must be weird to people from the outside, like, you know, like her friends are here. She's like, I just have to change my pump real quick. And she just like, you know, drops. Pants and, like, pulls off something or whatever. Like, there's no, I don't know, there's a lot of comfort between us, but I also, like, you know, I was also a stay at home dad for a really long time, so it might, might feel a little differently. It's interesting to me that you're, are you nervous about it
John 20:14
at all? Maybe a little, yeah, like I said, I'm just nervous that maybe I would do it wrong and mess it up, and then we've wasted one, or we have to John,
Scott Benner 20:22
we have to get past that. You're gonna waste a lot of them. Don't you worry? Yeah, a lot of waste is gonna happen between now and after this. Did you say you work near your house? You're not in the house, right? When you work during the day, go,
John 20:34
I go into the office four days a week. So we get, we get one work at home day, which is the remnant of of COVID.
Scott Benner 20:39
Yeah. How about your wife? What does she do? So she
John 20:42
actually used to work in the school the kids go to, but recently they had some in the district, they had some reorganization. So now she works out of an office in a different school. So she does some administrative work in a back office at a school, at an elementary school here, so she's not too far either from where they where they are.
Scott Benner 21:00
And how is your daughter making out with her care? Like, is she pretty button friendly? Understands carb counting. Like, what level do you think she's at?
John 21:07
I think she's getting pretty good. She She carb counts pretty well. She estimates fairly well. The other day they at school, they gave them a like, a pop school for to celebrate something. And she was like, Yeah, I just did 30 carbs, and I just went with it. And, I mean, she didn't spike up. So we were like, okay, she didn't really check with us. So we have a group, a group text that sometimes we'll get a, you know, hey, I'm gonna have this or, Hey, what do you think this is? She went to a birthday party last weekend, and she sent us a picture of her plate that she was going to eat, and we kind of gave her some guidance. So that's kind of been our, our method when, when she's not with us, or fairway, she's done fairly well.
Scott Benner 21:48
Yeah, it's good. That's awesome. Do you think she was anywhere near right on the popsicle? Or do you think she just
John 21:53
got lucky? You know, we did some googling after, I think she was pretty close. It was a pretty big one, you know. And so I think, yeah, I think she probably did pretty good for her.
Scott Benner 22:01
That's awesome. What do you think her reactions been to this last six months? Have you had conversations with her? Have you witnessed something? Do you think it's changed her in ways that are are obvious.
John 22:13
We haven't talked too much about it, other than the, you know, the management and how we how we do things. She has shared with us. You know that it definitely has made some things more difficult. You know, she has to
Scott Benner 22:32
do more
John 22:34
thinking before doing things, whereas, you know, yeah, a normal kid, doesn't we? We We took her to the birthday party on a couple days ago, and we had our other daughter, and we went to Starbucks and got her a frappuccino. And we didn't have to think, here you go. And so in one sense, I was like, oh, man, you know, our other daughter has it, has it, has it pretty well, you know, if you think about it compared, because if we have, if we had our older one with us, you know, it'd be a whole ordeal. And, okay, how much and what, you know, Pre Bolus. And so I feel for her, because she's a kid. But all that considered, she does very well, and she's very responsible. Sometimes she takes advantage of, I think, her being a little low, she'll want a candy or something, which is, you know, again, she's a kid, yeah. I mean, she's a kid,
Scott Benner 23:23
so we sounds like nerds. Time to me, yeah, exactly. Listen, be careful of the guilt that comes with going off with your other kid without her. And it feeling because it felt normal, right? Yes, yeah. And that made you feel bad,
John 23:40
a little bit, a little bit. It made me feel like, oh, man, this sucks for Yeah, yeah.
Scott Benner 23:45
So I'll just my bit of advice here is not to let your non type one daughter realize that her living her life without diabetes makes you feel guilty. Okay, yeah, that's, that's fair, yeah, and you don't want her to feel guilty about it either, right, right, and you can't flaunt it in front of the other one. It's a, yeah, your life got more difficult, like six months ago. John, Oh, yeah. Did it feel like it was already difficult enough? Like this maybe wasn't necessary. If anyone was trying to level you up, this wasn't needed. I mean, we were doing well. I thought, you know, I mean, we're not wealthy or well off, but I think we're pretty, pretty solid middle class. I mean, we we have a house and cars, and the kids do extracurricular activities and we take vacations. I mean, yeah, it was definitely, was definitely a blow, I think, to our perfect life, I guess you built the life you were you meant to build, right, right, and it and you're 40, and things had gotten like a little you had a little vibe going, kids are getting older, like stuff was happening and now, so can I ask you, how that, like, how does that impact you, your wife and your relationship?
John 24:57
It's definitely hard. Yeah. Because I think we both struggle with trying to balance her health, with letting her be a kid. We have a trip coming up to Disney in June that we have had booked for more than a year. I'm a planner, so I booked things we had in advance, and we never questioned going. We were like, No, we're not going to change that. But, you know, just looking at that now, we're like, Oh shoot. Like, okay, we're going to have to take a boatload of supplies and we're going to have to really be careful and really plan, and it's just, it just changes, I think, and so it's difficult, because now when we kind of try to plan things, or when we try to, I guess, do our best to manage her, it's it just makes this much more stressful.
Scott Benner 25:55
Yeah, listen, I would offer this. I don't know if it's more difficult. I just think it sucks. Yeah, like, you're gonna do something, something's going in that bag. So whatever, you'll put in extra pumps and extra CGM and, you know, an extra glucagon and that kind of stuff. When Arden was little, I would pack basically, like, double. And then eventually I was, like, that was way too much. You know what I mean? Like, you get home and you unpack, like, okay, and then the next time you take a little less and then you get it down to like a, you know, a happy little medium Arden went away last weekend overnight, and she took more stuff than she needed. She took two CGM with her, she took two pumps with her. She took insulin, she took an extra glucagon, extra test strips, five juice boxes, like some gummy bears. Took Pop Tarts. She's, I'm like, What are Pop Tarts first? She goes overnight. They work really well. And I'm like, okay, okay. And, like, she's like, put a banana in here. And I'm like, Okay, I put a banana. She got this little bag. She takes it all the way with her. Her and her boyfriend go where they're going to this, like, it's like a school event, you know, like, there's like a dinner and all this stuff. And she came back the next day, and I opened the she put the bag on the counter, and I opened it up, and it's exactly the way it was when I signed a lot. She didn't use one thing in that bag. So, and I've learned to just be like, Okay, well, good. Then, you know, that's excellent. She was ready right now, like she had it there. If she needed it, it's all good, right? The first time we flew, I put some stuff. I still think this is a good idea. The bulk of what we take I put in a check bag, right? But I carry on enough stuff that I can't believe this is what I'm gonna say. But like, I carry on enough stuff that if the plane crashes, and we live through it, like on an island, for a couple of days, I'll have time to go find the fuselage and pull out the other bag. Oh my gosh, okay, yeah, is how I thought about it when I was when she was younger. Now, the way I think about it is we only travel to places where we can get to pharmacies, right, right, and then when we don't, and we don't travel that often, but we did recently leave the US, and we took extra stuff then, because, you know, and we and I put a little more of it, I balanced it a little more and carry on. So it's almost like I carried on enough stuff for the week, and I put the extra in the check bag so that if, like, the check bag got lost or something, we could make out for a while, like, but I mean, the the fact that I might have put eight seconds worth of thought into that is 20 years, not 20 years, but like, you know, she's almost 21 and she was diagnosed when she was two. So it's been a long time. The amount of effort I put into it, thinking about it the first time versus this time is very different, you know, like she was away that night that I just discussed over the weekend, my son, I went to a buddy's house, and I looked at my wife like she she was out that afternoon. She's lost a bunch of weight. She was out buying, like, bras and underwear and stuff like that. She doesn't fit into anymore. She needed new stuff. She's like, out shopping. I did some stuff at the house. She came home. I was like, the kids are not here. I was, like, quickly, put on some of those clothes you just bought, and let's go get dinner again. Let's not go to, like, some like, close like, let's go to a decent restaurant and sit down and eat. And, like, we sat out on, like, the sidewalk outside of a place, and we were eating and we talked about things. And, you know, I never thought about Arden one time, like, I never thought about it, I never thought about her, I never thought about the coal live. It's just like, we just had dinner, you know, and we hung out, and we went for a ride afterwards, and, like, you know, if we were younger, we might have liked, you know, but, I mean, we had that kind of time. Yeah. My point is, is that, like, the way you feel now is, like, not the way you're always gonna feel, but, good, yeah, just don't hold yourself here longer than you need to, I guess is my advice, right? But I mean, six months in man like this is all just, this is fresh, you know? Yeah, yep, you and your wife little more on her than you. The Diabetes, daughter's doing pretty well with it. Let's pivot for a second. Because in your notes here, it says that you went on a GLP medication, but you went off it. I'm interested in
John 30:06
why? Oh sure, yeah, yeah. And so part of this is going to sound like me complaining, because every time I see the Dangs at bound commercial, it makes me mad. So I've struggled with weight, you know, for, I mean, I want to say forever. I mean, you know, I look back at I mean, even in high school, I thought I was big, bigger. Yeah, I thought I was big, but I look at pictures now and I'm like, you know, I probably was normal. It probably was just in my head. But now, you know, I am overweight. And so I got on, I got onto bound in August. So almost a year ago, it was working great, and I was losing weight, and I was increasing every four weeks, increasing the dose, no symptoms, no side effects. It was, it was working. How it should? I remember New Year's Eve. So that had been so August to to December, right? So five months? Yeah, I remember be celebrating New Year's Eve. We were there shooting off fireworks in our in my parents backyard, and I remember thinking like, man, like I'm doing it, like, this is gonna be my year 2025. Is gonna be my year. Like I'm gonna finally continue to drop this weight and continue to get in better shape. And then, I guess, because that crossed my mind not a few days later, it was January 3, I woke up and I had pretty bad diarrhea, and I thought I ate something bad, I'll be fine, but it didn't go away for, like, a week, and then also some stomach pain and some discomfort and bloating and gas and just a whole number
Scott Benner 31:35
of issues. Was this wrapped around a, um, a dose change, no,
John 31:40
this was, I was on week three of, I think, 12.5 okay, so I was just about to go up to 15, actually, but I hadn't yet. And so called the doctor. He was like, Yeah. He was like, you know, it's sometimes common. He was like, you know, we may have to take it down to 10, but come in do some blood work. We'll just, we'll just make sure everything's okay. And then, you know. So I go in daily the blood and then the doctor called me a couple days later, and it was like, Hey, your lipase lip I don't know how you pronounce that lipid lippies. Lipase is 600 and it shouldn't be more than 100 or he gave me the range. I don't remember. Okay, he was like, so I would recommend that you stop taking it, and let's watch this. So I did, and I went back, and they did the blood again, and it was so high. Then I waited probably a month, and I did it again, and it had come down, but it was still elevated. And so he was like, I don't think you should take this. He was like, you know, you don't want to risk pancreatitis because you're symptomatic. He was like, if it was just the high level, but no symptoms, I would probably be okay. But he was like, with symptoms, plus the result the blood test, I don't think you should take this anymore.
Scott Benner 33:03
Did they check it prior to you starting the GLP, no, they did not. Awesome. Yeah. Did the diarrhea go away when you stopped it?
John 33:13
Yes. So that's gotten better. I still have, like, some intermittent kind of, I don't even want to call them issues. It's just, like, every now and then I'll have so I don't even know if it's in my head or if I feel it, because it's what, I'm eight or something, but, but yes, it's, it's the symptoms have have gone away. I actually just went in last week for another blood test to see where the lipase is at, so I guess we'll see where it's at now.
Scott Benner 33:35
But, but, yeah, you never had any pancreatitis symptoms, though, no and how much weight were you lose? Did you lose?
John 33:44
I'm fairly tall. I'm six two, and I started at right about 350 and I got down to about 310 Nice. Now I've put back on probably 20 of that since, but, but yeah, I mean, it was it was working. It was working, great.
Scott Benner 34:00
What was it doing for you? Was it the amount you were able to eat your hunger? What were you getting out of it?
John 34:06
Yeah, hunger was less. I was eating less. I noticed that I would feel full longer. So it was definitely situation. A great job there. Yeah.
Scott Benner 34:17
Okay, and are you disappointed enough that you'd try it again. Like, a big Where are you at with like, I mean, 40 pounds must have been a pretty big decrease for you must that must have been, like, noticeable.
John 34:30
Yeah, it was, it was amazing. My a 1c, was down. I was flirting with pre diabetes, and it had gone down. I also have a non alcoholic fatty liver, and so those numbers had gotten better. The liver enzyme tests they run, I go every six months, and those had gotten better. So it was like everything was getting better. So I would try it again. I mean that actually, when I get this blood test back, that was, if I hope it's then the number has gone down, and that was actually going to be my, my. Goal was to say, Well, hey, can we maybe, maybe try this again at a lower dose?
Scott Benner 35:04
Listen, I think it's important to note that I barely got through high school, and nothing I said on this podcast should be blah, blah, blah, blah. You had high lipase levels with no pancreatitis symptoms at all, and you lost 40 pounds, and your biggest problem was that you had diarrhea, yes. How does that compare to your biggest
John 35:25
problems? Now, I would prefer not to, not to get type two diabetes, and
Scott Benner 35:32
I'll tell you, like, I don't know how long I've been doing this now, you know what I mean, the GOP, maybe a couple of years. Even, John, I really appreciate you bringing this up, so I get to say this, thanks. Like there was a fair amount of time there where I didn't have a solid bowel movement while my body was expelling whatever horribleness I had been packing into it for 50 years. What I would do is I would just deal with it, and I kept taking my vitamins and my nutrients and doing my, you know, exercise and I was losing weight, like, I have to tell you, like, I don't think I cared what was happening if I was if I was losing weight. And I'm not saying that that's a thing you should do for certain. I would look closer at this, because it didn't take me a lot of looking to find out that high life pace numbers when you feel perfectly fine is common and it rarely means silent pancreatitis. There's plenty of good content you can go, like look into about acute pancreatitis guidelines with the enzyme levels. It's not, yeah, I mean your reasons why your lipase can climb when your pancreas is fine, glps, inhibitor, steroids, opioids, a bunch of different medications stimulate or slow renal clearance. Diabetic Ketoacidosis can give you enzyme leakage. There's a lot of different things. Gallstones could make it higher. Crohn's disease, infectious colitis, like chronic kidney disease, is a thing we don't want you to have, obviously, yeah, if it's not a renal problem, then also strenuous exercise, trauma, sepsis, like these things all make it higher. Let's ask it can rapid weight loss. I don't know. Like it sounds to me like you just, you know, you hit a spot where you maybe ate some stuff around New Year's Eve that made your stomach a little upset, and that got you to the doctor, because it went on for a week, and then he did your blood work, and now you're suddenly 20 pounds heavier. Yeah. Is that about what happened? Yeah, it's about what happened yourself right to 20 pounds is what you did. Yes, yes. I mean, John, listen, at your height and weight. I don't know. I mean, I can give it to you from my personal experience and from my personal perspective, it's obviously not medical like advice at all, but I know where I was and where I was wasn't going to end well. So I mean to say that, like something else bad's happening, but that that's going away. I don't know how to say this exactly, but like, you're giving yourself a better shot. Yeah, you know what I mean? Like, no type two diabetes, no, all the other stuff that comes with weight. Like your joints probably started feeling better, right? Like, did your back get less stiff? All that stuff started happening for you. Yes, yes, John, what are we talking about here? Just go to the bathroom and just go to the bathroom and be like, Oh, that was horrible. And then get out of there and be thinner. Oh,
John 38:29
I think I might, I think that's yeah. And
Scott Benner 38:32
maybe 10, like, go to 10 for a while, and just maybe ride 10 for a couple months, if you want to. But, I mean, the truth is, is, like, once you're I mean, I'm handling it fine. That's not me. I'm not showing off. I'm not like, unlike you, John. I mean, I've been on it for a couple of years now, and I took my shot, oh, day late this week, and I'm almost two pounds heavier than I was on the sixth day. Yeah, I'm not out there, like, knocking down a ton of food or anything like that. It just works the way it works. Man, yeah, if I stop taking it, would I gain 20 pounds back? I probably would. Like, I mean, I don't know another way around it, like, I eat, I do not eat a lot of food, and to put two pounds back on just because that medication was out of my system. For you know, it's crazy. I don't know what it's doing, but Right, it does something. Man, yeah. Anyway, I not a doctor, not advice, but I bet you, if you weighed 240 pounds, you'd be happier. I agree. Yeah, I agree. And healthier and and I imagine that this is a process. Like, maybe I'm wrong. Like, listen, you don't want to if you get diarrhea for nine years, I'm assuming you'll be like, Well, this was, this wasn't good, you know. But I don't know, did you eat something that, looking back now, was very fatty, or something like that, or something you hadn't been eating for a while prior to that? I don't think so. I mean, I couldn't put my finger on anything. I mean. Obviously the holidays, right? So you're, you're not eating your normal stuff, right? I mean, but I don't know it works on me really well. Like, even at the holidays, I was like, Oh, all right, I'll just have
John 40:09
a piece. Same. I lost weight over Thanksgiving week, Christmas week. Yes, it was, it was absolutely mind boggling, correct?
Scott Benner 40:17
Yeah, no, I know it's something. Well, listen, I mean, I was gonna say, maybe try we go V, but, I mean, there's that extra G, I P, in the in the Z bound that is definitely going to help you with weight loss. I don't know, man, like good luck. I'll say that, does your wife try it for does your wife have any need for it? Anybody else in your family using it?
John 40:37
She is actually on we go V, and she's been on it for a little while, and she has done very well. So her, she has lost a lot of weight. It was funny, your your story about your wife getting the clothes, she's been going through that too. She went through her closet, and she was like, three quarters of stuff doesn't fit me. It's too big. Yeah, yeah. So it's been great. She, she's done really well on it. Hasn't done she's not even at the highest dose. She's She's been at the I think that one is 1.7 I think for wegovi as the second, and she's been on that for months, and it's, it's worked really well, any help with their PCOS. I think if, if I asked her, I'm pretty sure she would say yes. She's still, she still gets pretty bad periods. Yeah. So I don't know if, if that piece has gotten any better, but, but I think overall, just because of the drop of the weight, I mean, I think she feels better overall, I
Scott Benner 41:28
would imagine, yeah, also the fat, like, you know, impacts your your hormone levels too. So, you know, just getting those more in check might be helpful. Man, yeah, I feel for you that something happened, because it's, I mean, listen, I I've talked to, I talked to plenty of people are like, I took it, it was magic. And I've talked to people who are like, I took it and I had to stop. But, I mean, I think it's interesting to talk through the why you had to stop. Like, I think I brought this up the other day, but I was talking to a friend who's like, you know, contacted me and said, like, I'm gonna stop doing this now. And I said, why? You know? He's like, Ah, it's not for me. And I was like, Oh, what's that mean? You know? And I realized after a while, like, I was having a conversation on the phone, and they were in the parking lot of a convenience store having lunch. And I was like, he so I don't feel well on this. I was like, really? So you're slowing your digestion down with a medication and still eating at a convenience store. I'm like, Yeah, that might not feel good. Like you're gonna have to do something here. And just went with, well, I'm just gonna go with, like, reduced calories. And I was like, why don't you try that? Like I couldn't wrap my head around like, I'm like, Yeah, but do that now, right? But so some people, it's not gonna be for some people, and by the way, they're gonna be some people who are gonna have actual medical complications with it, and they certainly shouldn't be using it. You know what? I mean, true, right? I just, I don't know if you're that person or not. And I mean, what was your confidence level with the doctor? Did they really feel like they knew what they were talking about?
John 42:52
Well, I mean, I trusted them, and I saw PCP for probably about 1520, years, but I actually was, was trying to make an appointment with at work. I work for a pretty big company, and so we have, like, an in house clinic, and they offer weight loss consultation. So I was actually going to go see them and see if, you know, they would give me a different opinion. Yeah. So, yeah, that's that's been my my plan. I
Scott Benner 43:14
know this is nowhere near I'm Texas is a big state, but Dr Blevins, who's been on the podcast a couple of times, he's in
John 43:19
Austin, I have heard, I have heard his episodes, yeah, yeah, we're not, we're not too far. We're in San Antonio, so we're right hour from Austin.
Scott Benner 43:27
Yeah, I've only been there once. I flew in, I went right into Austin, I gave a talk, and I left again. Was the way I see the it's always how I see the country, by the way, it's like airport hotel. Hey everybody. And then boom, gone. So, yeah, I'm actually going to stay a couple of oh, I shouldn't say this. Never mind telling you all where I'm going to be. That's the first time I've ever had that thought. I was like, Yeah, I probably shouldn't say that. I don't know, man, I hope you, I hope you figure it out. Because, I mean, not poopy, but type two diabetes, not exactly a great trade off. So that's true. When you think of it like that. I mean, that's how I think about it. I think about, like, diarrhea, not fun, not trying to kill you, right, right? And, and it'll probably, you know, I'm sure it'll, it'll abate at some point, like, I don't know, like, I really wish I understood more because I went through it. Like, don't get me wrong, like I was, like, I was going through it. I don't know why it changed, other than to say that my body's changed significantly. Like, you know, I wish I had a more technical understanding of it, and maybe I should look into it. I would say that the very colloquial way I thought about it was, there's a lot of bad stuff in here, and I'm getting rid of it. I have no idea if she's right or not. So anyway, what made you wanna come on the podcast? That probably something I should ask you an
John 44:47
hour ago. No, I mean, I listen. I love podcasts. Podcasts are like my thing, like you in the car, you know, getting me. So I have a podcast on TVs and TV and shows and movies and and so then when diabetes have. And I was like, Oh, let me see if there's a podcast about diabetes. And sure enough, I found the podcast. And I always liked hearing this. I like hearing the stories people's different stories about how they manage and diagnosis. And so I thought, hey, and I think you had posted, you had some slots open. And so I said, Hey, maybe it's a good chance to get on
Scott Benner 45:19
John. I see here, rapid weight loss plans can indirectly nudge lipase up via gallbladder sludge ketosis or lipid storms. But if you stay symptom free and the value sits under three times. ULN, it's rarely a harbinger of silent pancreatitis, you can slow your weight, cut down, keep the to keep the gallbladder moving, and repeat the lab three times, ULN, and what was your number? It was at 603 times. UL and just means three times the top end of the normal range. Okay, so the top end of the normal range would be 60, so three times would be 180 yours was, say it again, 600 600 that was a lot. I'm not gonna lie. That sounds like a lot more and but you checked it again, but you were off the medication at that point. Yeah,
John 46:10
the last time I had it checked, which was in probably March, it was right around 80,
Scott Benner 46:15
okay, but you're also gaining weight, not losing weight, yes, no. Symptoms of pancreatitis, not that. Yeah, no. All right, John, listen, yeah, I think you know where I'm at.
John 46:31
Yeah, I can't hear you.
Scott Benner 46:34
I'd like to see you alive, and then we'll worry about the rest of this. Well, true, unless it's gonna, like, listen, also, pancreas is horrible, right? It's not like, exactly, you know, there's no risk in there, right? Anyway, I would do some Googling and some checking and really ask some of those questions for yourself and see if you get back answers that, you know what I mean, like, see if you get back answers that make sense to you. Yeah, it makes sense. So you love podcasts. That's it's good for me. I appreciate that. What kind of podcast Do you usually listen to before this? I
John 47:07
have a sports one. You know, local, local sports here in town. I'll do a I have a one about movies, one about TV shows. So, yeah, I have a pretty good rotation going. This is not a shameless plug, but my daughter and I, we actually started, uh, kind of making our own on, uh, we talk about Disney movies. We do, like, a nice, like, a re watch, yeah. So, so we, we have, like, we probably get, like, 20 listens per episode. Awesome. You know, yes, it's our little, our humble, uh, and it's, it's with the type one daughter. So I mean, it's kind of our bonding, our little bonding moments. Yeah, I love
Scott Benner 47:45
that you got little microphones. You sit down and watch together and you click talk. That's awesome. Yeah, it's fun time. No kidding, you don't want to listen to me and Arden watch TV. We just got done severance. Oh, I love severance. Now, if you like severance, you would not have enjoyed watching it with Arden tonight. Every episode, and I'm like, I don't know why I'm watching this. Like nothing happened again.
John 48:09
Yeah, it was the second season. Was a little slow. Holy Hell, John, yeah, it picks up at the end. Though, the last episode was pretty
Scott Benner 48:17
intense, that's what people told me. And then I watched it last night, and it got done like, when someone owes me 20 hours of my life, I actually said Dart. And I was like, Hey, listen, is it possible that Ben Stiller is fucking with me directly? Oh, wow, I did not enjoy it at all. I just want to be clear, don't you can judge me. It's fine. I just like, I've had people tell me, Oh, you didn't understand. I'm like, Nah, I understood it fine. Don't you worry? Yeah?
John 48:47
I mean, it tweets their own. It's not, you know, has different tastes. Yeah, please.
Scott Benner 48:51
You don't have to, like, the same things. But like, what I'm saying is, like, sitting here watching it with me, you would have not enjoyed that at all. Like, like, people are like, Oh, the acting is great. I'm like, Yeah, awesome. It's great acting. I thought people acted really well in it. The acting was good. I understood the story. I don't care. It's like, it got interesting for me for five seconds in the in the finale, yeah, and then they ruined that. Let me just May I walk you through it. John, real quick, yeah, yeah. He was sending videotape messages back and forth to himself. Like, at first, I was like, Oh, this is interesting. Like, you know, these two are gonna have to collaborate on getting, you know, his wife out of the thing, and he's gonna change floors and change people, so they have to both be on board. I was like, I got it. And then 10 minutes later, I'm like, are we still doing this? I got it already. Like, let's go, like, this is just maspidatory at this point. Like, get moving, right? So then the good feeling I had went away very quickly. And then the way it ends, if I could physically have attacked the actors, I would have, like, when it act it ended. I. Like that doesn't make any sense. That literally doesn't make let me tell you how it ended for me, two people realize that they can't live in a volcano, but they could live outside of a volcano, and then they got to the door where they could leave the volcano, and instead of leaving the volcano, they jumped into the volcano. Yes, yes, you go, that was it. There's no truth in this art, is what I thought, which is the thing I yell at my wife a lot while she's watching television.
John 50:29
Yeah, I did have that thought I was like, so they still kind of run around these hallways for the rest of their lives, for
Scott Benner 50:34
eight seconds before someone murders them. Yeah, it's not for the rest of their lives that if they had a chance of getting away then John, I would have been like, Okay, I wouldn't have done that, but I understand there's no they're gonna fall into the lava and die. Do you understand what I'm saying? I'm trying to be obtuse here. There's no happy ever after. It's not John, like, it's not gonna end well, if they would have laid down the hallway and had sex, that would have made more sense to me. Let's just bang until they come to kill us, right? Yeah. Or even if they would had a cupcake, I would have been like, right on one last cupcake together or something. It just and that thing with the marching band that you all were telling me online was awesome. It wasn't that was weird. I agree that was weird. Also, I don't know how many times you've tried to run into a door with a candy machine on the other side of it, but you can't do it for 45 minutes. It's exhausting. Okay? Goddamn sense. John, yeah, you. Ben Stiller, 20 hours, I kept watching it, waiting for something to happen. Nothing happened. Also, there's a lot of obtuse like entertainment that I enjoy, so I'm sure if somebody would hear something else that I liked and been like, yeah, I hated that thing too. So anyway, here's the worst part of it. I didn't hate it, I just didn't like it, yeah? And it felt like I wanted TVs like that. That's like, you're describing my life, friend, yeah, yeah. So you and your daughter, what's the last Disney movie you did? I'll try to calm down. I really hate it.
John 52:06
So we in honor of Star Wars Day. We did Star Wars episode for a new hope. Star Wars being a Disney movie, since they purchased from Lucas Films, yeah,
Scott Benner 52:18
I see, I see the loophole used there, that's awesome. And did she like Star Wars, or was she like, what is this garbage? No,
John 52:25
she does, yeah, she's a Star Wars fan. So as I mentioned, we, we've or we're going to Disney. We went to Disney a couple years ago, and they have that whole Star Wars, uh, Galaxy's edge, yeah, and yeah. So she, she loved it. So I think she's starting, she's, she's 11, right? So she's starting to get to, like, Okay, this is like, I'm too cool for this. But she's still like it. I think maybe it's for me. I don't know. She's still into it as of right now, so we'll see if that wanes as she gets older. Listen, have you heard Arden on the podcast? I've only heard maybe one or two Arden episodes. Every time we do it, she's like, Oh, I hate this.
Scott Benner 53:00
Let's get this over with. And I'm like, you're having a good time. She goes, am I? Like, that sounds like you are, but it is nice to do it together. Like, I agree, by the way, and everybody shouldn't do that. Like, we don't need you all out there with a podcast. Does she care that? I don't want to say nobody's listening to it, but does she care that only 20 people are listening
John 53:19
to it? I don't think so. I don't think Shiva knows. And to be honest with you, 15 of the 20 are probably our family members. So, yeah, you know, but I don't think she cares. I think
Scott Benner 53:29
that's nice though. Like, honestly, none of my family listens to this. Yeah, I actually said to my son the other day, I was like, you know, if I die one day and you listen to the podcast, you might know how I feel about this, but that's funny, but I know you don't, yeah, no, I think that's lovely that you found something to do with her. That's really cool. Yeah, does your other daughter feel left down?
John 53:49
Well, actually, so I should, so she's involved too. She so my older daughter and I, we kind of are like the host, co host. We go through it, and then my younger daughter, she comes in and she has one little segment, so she has her little piece. You let her scream and yell like I just did, yeah, yeah. She has her little piece because she didn't. She was feeling left out. So we had to build in something for her to feel part of the team.
Scott Benner 54:10
Well, you should do one with her and then let your other daughter be the step in one time. Maybe, yeah, maybe John, I'm gonna tell you what, where this leads six months from now, it's the two of them, not you, and the thing's a huge
John 54:20
success. Oh, I bet, yeah, they're gonna force me out somehow.
Scott Benner 54:23
They'll be like, you just do the editing and upload it, buddy. Oh, the worst part, yeah, the worst part, it is terrible, isn't are you actually sitting down and editing it?
John 54:32
We make the episode. They're like, 20 minutes long. So it takes me, you know, an hour. And I don't do it all in one sitting. I do a little bit here and there, but, yeah, I go through and I just take out a lot of the UHS and the ums. And sometimes we'll say something, and then we didn't say it right? So we'll say it again right after the other and so we'll take that
Scott Benner 54:49
out. So dubbing, I don't do that. I just people are like, yeah, no, listen, poor Rob's gotta, like, edit the show. He said to me the other day, he goes, No one listens to this podcast more than me. And. The way you said it. I was like, I don't know if he's complaining or not. I can't tell. Yeah, that's probably true, yeah. But he's like, every once in a while, I'd be like, Yo, you already like, these are getting long again. And I'm like, I'm like, Wait, what are you talking about? He goes, I just did one that was, like, an hour and 45 minutes. And I was like, Oh, wow, yeah, it's funny, because if it was up to me, they'd all be longer. I don't know if anybody wants that, even if there's an appetite for that, but I find that, like, at the hour and a half mark, like, people really chill out in a different way.
John 55:31
Yeah, I think from a listener too. I think that's the kind of the sweet spot. You know, when a podcast is like, hours long, it's just like, it's overkill. But I think that 60 to 90 minutes is, like, perfect. You get some of the banter, you get some of the like, kind of the like, the severance talk, right? You get that kind of stuff. And then you get
Scott Benner 55:48
the main core of the, yeah, yeah. So no, I agree. I really do, like, listen, I grew up on like, one talk radio, so, like, there's no doubt in my mind. Like, I used to get at 6am and like, the radio had, commercials so it wasn't straight through, but I'd put on a radio at my station, at my terrible job at 6am and if Howard Stern went off at 11 o'clock, I was like, Oh, why do you go off so early? You know what I mean? And I and obviously it's not five hours of listening. There's a ton. There was a ton of ads in between it, right? I like hearing people talking in the background. Yeah, I prefer that over I can't I can't believe I'm saying this. Like, I get in the car sometimes I'm like, I gotta listen to some music, and I'll listen for a little bit. And I'm like, I had to listen to somebody talk. I prefer feeling like that. I actually pay for premium YouTube so I can close my phone and the YouTube videos will keep playing. Oh, okay. So I can use them, like video, because I just like people talking in the background. So yeah, it sounds like you like it too.
John 56:48
That's me. The girls make fun of me. Would get in the car because it'll be on something, you know, a podcast or talk radio, and they're like, can we put music on? I'm like, oh, okay, and we change it, yeah,
Scott Benner 56:58
God forsaken. Pink pony club is stuck in my head for three weeks. Oh, yeah, Jesus. I woke up thinking it the other day, and I was like, what is happening? That woman found woman, she's a child, but that person, she found heroin in, like, audio form, because that man, that song sticks to you, yep. Oh, I haven't put one on purpose. I want to be clear that I have never once sat down and thought I'm going to listen to pink pony club right now. But I did get in the car by myself the other day, and I listened to doji by myself for like, 45 minutes, in case you're and right now, John's like, I don't know even know who you're talking about. Then later, Arden got in the car with me, and it was on, and she goes, you listen to the doji by yourself. And I went, maybe so, oh my gosh. So I'm sitting there last night. I get an Instagram like DM from Arden. It's just like a picture of doji at like, the Met Gala. I was like, is she trolling? She's trolling me. She is, yeah. When do your daughters get older and they can treat you poorly? You're gonna lie. I know. I know. Any more kids, are you guys good?
John 58:08
I think we're good. Yeah,
Scott Benner 58:12
it's fine. We're good right here. Yeah, we're good with it too. Any Can I ask a question that you don't have to answer, but any disappointment not having a boy?
John 58:21
No, I don't think so. So, I mean, I think my wife was content with the one. And so I think my pitch to her for the second was, hey, let's try to see if we can get a boy. And we didn't. And so that, yeah, it was, we were good.
Scott Benner 58:34
She blame you for that. Was she like, Good job, buddy.
John 58:38
No, no, she, yeah, we, you know, now looking back, I mean, you know, we can't imagine, you know, our life without either of them, but, but, yeah, that was probably why, you know, we were like, Hey, let's, let's see if we get one, you know, one of each. But, yeah, wasn't in the cards. No,
Scott Benner 58:51
I got one of each. It's not that special. Don't
John 58:53
worry. I actually think, I mean, it's kind of nice having the two girls. I mean, they like similar things. They play well, you know, they're, you know, I feel like it might be, say I had a sister growing up. We were two years apart. So, I mean, I, you know, we were fine, you know, even though, you know, we were into different stuff. But so I think it all works out, but, but I look at them and I think, yeah, hopefully, hopefully they're, they're kind of a grown together, and they'll have somebody for the rest of their life.
Scott Benner 59:19
Your girls are anything like mine, you should stop saving for college right now and just start saving for clothing. So
John 59:26
it's, yeah, we're getting there. Yeah. It's crazy. The 11 year old. So we gave her a choice of throwing, like, a get together for her friends for her birthday, or going shopping. Well, she picked the shopping, and my wife took her, and she was like, we're in trouble. She was like, she likes nice things. She won't let me my wife's like, I'm always like, hey, let's look at the sale rack. And she's like, nope. And it's, yeah, it's, it's crazy. You get
Scott Benner 59:49
back to that school lady and move that paper around a little more. We got stuff to buy. Okay, yeah, it's crazy. Jesus. Now trust me. Arden uh, got such a crazy eye for it. Two that just, I don't know the thing, she just went to the formal, like she needed a dress for it. That's fine, but that's not how it works. Like they ordered three dresses and then tried them all on, and then decided on one and then returned the other two. And I'm like, okay, they're like, we're returning them. But I'm like, I mean, yeah, I guess so. Like, do any of them never get like? It starts making me feel like, does it always get returned? I'm very nervous about this. The whole thing is, it's just nerve wracking. My wife said to me, she goes, she's always in charge of Christmas, and she goes, You're in charge of Christmas here. I think she thinks I don't help her enough. I think if she heard this and it wasn't in my voice, and I said, You're a bit of a control freak and you don't let me help you, that maybe that would resonate with her. But nevertheless, she's hit me this year with, you're in charge of the holidays. And I'm like, fine. And I said, I'll start with Easter. And she's like, fine. It's so like, three days before she comes home with, like, Easter candy and stuff. I was like, Hey. I was like, I thought I was in charge Easter. She goes, you're not doing it. I was like, No. I'm like, I did it already. I have a whole bag of stuff. And I showed her my bag, and she was I didn't know that. I was like, You didn't ask. I was like, Oh, this is what it feels like to be a lady. This is fun. And she's like, Well, you're in charge of Christmas. I was like, oh, yeah, sure, sure. I am. I was like, right. And she goes, Well, what do you to do for him for Christmas? Like, everybody's getting $500 and a nice kiss on the cheek. It's Christmas time. Go get yourself something nice. Leave me alone. And she's like, that's not what Christmas is. I said, Well, you put me in charge of Christmas, and Christmas is going to be money. Like I said, because they're 100 years old these kids, yeah? What am I buying them? Jenga, like, Stop, you know, I mean, she'll but she wasn't, like, what they want nowadays, money, yeah, please, what they want, yeah, money and access. I don't know. I can't get them access. So, ice is such an unfair question because you're so new to this. But like, what are your give me a couple of your long term diabetes related concerns, like, what are the things that are like gnawing at you a little bit that you're worried about?
John 1:02:07
I mean, obviously complications with, you know, the different things that you read about, and we avoided DKA. Luckily, we must have just caught it soon enough, because she was so high that, you know, you hear the stories about getting into DKA at that stage, but, but, yeah, that makes me nervous is long term complications, you know, eyes and limbs and things like that. Knock on wood, she's fairly healthy, so, I mean, like, we don't have to deal with sick times very often, but that scares the crap out of me is when she's sick and we're having a hard time controlling the blood sugar. I think that freaks me out. Yeah, this big stuff. And then there's just days where you just have an off day, and it's just like last night. And we were, we were fighting the low, which, again, better than fighting a high, but, but, we were just shoveling candy and juice, and I think we just didn't calculate dinner, right? But, but, but, yeah. I mean, you know, it's just the the struggle. Yeah, I comment on the on the Facebook group, and I'll usually say, like, Hey, we're six months in. It does not get easier. But like, you learn tips, you learn ways to manage, yeah, that's one of my biggest takeaways. I am 100%
Scott Benner 1:03:14
confident in telling people that diabetes is just diabetes, but you will get better at it, and that makes it feel easier. So having more skills and more experience and not freaking out as much, even the stuff, like, you're very kind to list those things for me when I asked you to. But even the things you're worried about now aren't the things you'll be worried about later. Okay, it all morphs at some point. Like, you know, you're starting where everybody starts, you know, right? Big picture ideas, like, is her life going to be as long as it going to be as healthy? Is she going to have, like, some catastrophic thing happen to her? Like, these are very common, like, early on worries, right?
John 1:03:50
Yeah, I mean, and, you know, I again, I said earlier, I'm a planner, so, like, to me, I'm always trying to, like, plan ahead. And, you know, it's hard because I'm, I'm the type of person like, I think, like, Okay, we're gonna take her to college one day, and I'm going to have to, like, sit down with these roommates and, like, scare the hell out of them and be like, hey. Like, this is, these are some things you need to watch out for. And I imagine her just being like, Dad and rolling her eyes at me, you know, but I think about that stuff too, like bringing home a boyfriend, like, hey, come sit down, son. Let me tell you about type one diabetes. I don't know, and maybe it's just me trying to over prepare. Yeah,
Scott Benner 1:04:30
no, you're, um, you're doing the thing, John. You're worried. Worry is a waste of imagination. You're just imagining what's going to go wrong. Yeah, yeah. And most of that probably won't happen that way, right? You know what I mean, like college? I mean, in seven more years, I don't know, will college be a thing and, you know, or will the AI machine just put the thought in your head so you can go do it? I don't know how it's gonna work. You know, are you gonna have to scare roommates? Like to help like, your daughter will be in a different situation then she won't. You to do that, and she probably won't need you to do it. And you know what I mean, like the boyfriend thing, like Arden seeing a boy right now. Like, it's so funny how I talked to her versus how I thought I would talk to her, because instead of telling her, like, you have to make sure that he blah, blah, blah, I asked her, I'm like, I said, how much of your diabetes are you letting him know about, and that comes from me talking to young women on the podcast. Oh, true. Okay, instead of me telling her what she should be doing, I asked her what she's comfortable doing. Is a nice growth moment for me. John, yeah, and people who think I should have liked severance so, like, maybe you should put some of that growth into that. But no, you're wrong. That severance show is garbage. But nevertheless, I just said to her, I was like, what you know, what's your level of like? I said, I'm not going to mention anything to him. It's up to you, but what have you told him so far? What are you comfortable with him, knowing? What have you told him? And then she just shared with me what she's told him so far. So it's not the way I would have imagined it when she was 11. Sure. Okay, yeah, I just said the same exact thing. You said, like, oh, he needs to understand this. And does he know how to use glucagon? And does he, like, you just realize, like, that's not what they're really gonna do, you know,
John 1:06:11
right? Yeah. And that makes sense. I mean, you know, I mentioned a couple times we took her to her birthday party on Sunday and and we, we told her, we go. Just tell one person that you have this glucagon. They're not going to know what to do with it, but just tell them that it's in your bag. And that way, in case they know it's there, they can alert somebody if they have to, like, just, just tell somebody. And she said, Okay, I will. So we've tried to do little things like that, where we're not going in, and we're not saying, Well, look, here's this and here's how you do it. But we're just telling her, like, make somebody aware in situations early, to try to get her to learn, I
Scott Benner 1:06:46
guess. Yeah, that's best practice. Like, it's what I would tell you to do. I just don't know if it happens or not, right, right? And if it has to, because, like, you know my story with Arden, like, she took her bag with her, and we packed all that stuff in it, and it came back and was never opened, and nothing was out of it. But all it was is it smelled like a rotten banana. So, yeah, having said that, I don't know, like, if something would have gone wrong, I would have been like, Thank God it was all there. And we should have told somebody, and like, you know, the other side of it. So, and I did help her a little bit, like, I knew she was going to be super busy that night, so I actually paid a little closer attention to her blood sugar, in case it was, like, going one way or the other. And, you know, like, I could kind of get to her and send her a text. I did end up texting her once in the evening, and then at 5am she got a little low, and I texted her, and she's like, Oh, I fixed that 10 minutes ago, leave me alone. And I was like, Yeah, awesome, great. This has been a fun, fun conversation. Anyway, you'll be okay, yeah, can I tell you something that I hope you find comforting. I believe you have the whole thing licked already. You just don't even know it. Your interest and your desire to be involved is what you really need, and you have that. Not a lot of men come on. You know what? I mean, you're obviously interested in it. You're making a podcast with your daughters. Hey, you're a good guy. I'd go take care of yourself a little bit and keep being yourself, and I think you're going to be good. Yeah, I
John 1:08:16
appreciate that. Yeah. Like I said, it's been a journey, and we have, it's almost like you just learn new ways, you know? I mean, we now how we live, right? It's just a different way of learning. Yeah, new normal. It's
Scott Benner 1:08:27
normal now, and you'll not what you wanted and it's not what you planned for, but it'll be awesome, you know what? I mean, right? Like, just as awesome as the other thing was going to be, right? You know, at least now you, uh, now you're super focused. It's got your it's got your life's got your attention now you're like, whoo, yes, yes, not in the right way. John, I understand. Man, listen, it's been my experience that I wish it was easier. And there are things that my daughter lives with that I wish she didn't live with. But overall it has not, it hasn't changed the big ideas about being alive, if that makes sense,
John 1:09:02
yeah. And that's comforted me here, because that's, that's, that's all you want. I mean, you know, that's all you want for your kids. I feel like,
Scott Benner 1:09:07
yeah. I mean, a lot of things can go wrong. This is one of the things. You know, there's a lot of ways to think about it. You could have got hit by a car that day, or, you know, fallen into a volcano, go watch that stupid show and then, and when it's so frustrating, when it although, I have to say, the freeze frame at the end, I thought, Oh, that'd make a cool t shirt. Yeah, yeah. Other than that, yeah. I was really, really irritated by the whole thing. The entire thing just soup to nuts. Every minute I watched it, I was like, why am I watching this show? Why won't I just stop watching it? Because everybody was telling me it was good. I was like, All right, I'm missing something.
John 1:09:46
That's my wife with, with the White Lotus. I don't know if you've seen that one. Hold
Scott Benner 1:09:52
up a second. John, yeah, that show fcking sucks, too.
John 1:09:57
Every every time she was like, What is the point of this show? She's like. Why what I
Scott Benner 1:10:01
don't nothing is happening. It would end and I'd go, that was another hour where nothing happened. Oh, my God, so God forsaken. Slow and again, masturbatory, self indulgent, and just like nothing is there's no story and there's nothing happening. It's just, it's just painful waste of my time. Oh my god, that show. Mike White, I liked you on survivor that year, but the rest of this has just been horrible. I
John 1:10:37
think that's just a lot of TV. I think that's just a lot of TV nowadays. I guess because, I mean, a lot of shows are like that. I feel like,
Scott Benner 1:10:43
I mean, even there are bad shows that are better than that. Yeah, let me give you an example of a terrible television show. And I mean, really, really bad. And I love it. It's so bad. Hold on. No, I'm embarrassed, because I think this is going to argue against my argument, but I allow myself one TV show that is just ridiculous and terrible, right? My TV show for the last couple of years that falls in that category is something called the rookie with Nathan Fillion, okay, okay. I heard of it. Okay. It is not good. I want to be clear. Okay, there are times that you're watching it. I'm like, Did they let three nine year olds write this? There are times that people end their scenes and I go, like, I yell into the into the house. I go, like, this acting. It's terrible, but I like it. They're like, I don't know. Like, it's agreeable people on screen. This is not what I'm comparing severance to, I want to be clear. Okay, something's got to happen. We got to build to something like, it's not enough that something. Did you watch White Lotus?
John 1:11:50
We did. We watched, we just, we watched the whole we've watched all three seasons.
Scott Benner 1:11:54
Yeah, listen, so for anybody who hasn't heard watch season three, that's planning on it, I'd stop this right now, if I was you, okay, there's a difference between a story arc and watching a kid jerk off his brother during a threesome. Okay? Like one thing is, like, shocking. I didn't learn anything about these people. Do you understand? Like, there's no depth to them. The story did not explain anything. It did not bring me to another place on the planet. It didn't give me a new understanding of people. It just bored me into oblivion. And then all of a sudden, I saw that happen, and I went, I'm like, and people are like, Oh my God, it was so shocking. I'm like, Yeah, you mean a because it's ridiculous, and B, because that wouldn't happen, and C, because it comes out of nowhere, because there's no story arc whatsoever, right? Yeah, the father with the constant like, you know, I want to kill myself. I want to kill myself. I want to kill myself. And then, like a bad TV show, they leave the fruit in the mixer cup. And I'm like, Oh my God. I'm like, who wrote this? A nine year old, yeah, and the guy with the gun and the thing, and it was all fcking stupid. Did you enjoy, John? What did you think of light, Louis,
John 1:13:14
it was not the best television, I don't think that we've seen. So,
Scott Benner 1:13:18
yeah, it's not the best you, god damn right. It wasn't because nothing happened, nothing, even the thing with the like, let me ask you a question. I almost describe somebody by their I'm not good at describing people. But was the woman who son showed up on the island late? Was the guy with the money? Like, you know they mean, like, was he trying to, like, scare her. Was he going to kill her like you don't know, like you don't know any of it, right? And does it make any sense that he gave her all that money if he was going to kill people, why wouldn't he just throw in the water? Right? Right, right? There's no truth in that art. Do you see what I'm saying? Everyone should look at the phrase, there's no truth in this art. It doesn't have to be real. It just has to make sense. Make sense, right? Yeah. And there's no way at the end of severance you'd go back in,
John 1:14:09
yeah. Would you come back to severance? Yeah?
Scott Benner 1:14:11
Why would you go back? John? Explain to me why they would go back in. Go ahead. You like the show. Tell me right now,
John 1:14:16
thinking of it that way, there is no reason to go back in. I hear you.
Scott Benner 1:14:20
Thank you, John, yes. And everything doesn't have to make sense all the time. Listen, I know what. There's a moment in Pulp Fiction where Bruce Willis has a ball gag on, and none of it makes a lot of sense, but it was fun. And you know what? Severance isn't fun. It's not fun. They made sex un fun. They made time traveling un fun. They made everything un fun. Remember the sister's husband, the
John 1:14:45
author, I think he was just there. I don't even know why he was there. Exactly, John, he was there to be funny, I guess. Or I don't know why was
Scott Benner 1:14:53
that working for you? No, he wasn't that funny. Every second he was on screen made me murderous. Mm. Yeah, okay. It was relieved when he left. And then the sister was there, and she was torturous. They made Sandra Bernhardt, not funny, okay. Do you even know she was in it? You're not old. You're not old enough to know who she is, right? She's the nurse that drug around the wife to the different rooms. Oh, okay, okay, okay, right. That woman used to be a comedian. She's had sex with Madonna, okay, but what I think, or they were friends, I don't want to besperge them. I'm not sure. I don't remember the 80s as clearly as I should. But what I'm going to tell you is, is that, God, awful, just terrible, nothing. What were the goats for? Oh, the goats. That was, yeah, again, who knows? And the goat people, I don't even know what they were there, what they Yeah, yeah, right, John, you watched a lot of stuff you don't understand. Yes. And it's not because it's like, mystical, it's because it didn't make any sense, right? I know Ben Stiller lived through cancer and all, but I don't know how much rope I can give him here on this. You know what I mean? Like, I'm happy for him. And all by the way, did he divorce the girl from The Brady Bunch movie? And then they got back together?
John 1:16:05
I think so, yeah, I think they're back together. I think they're making, I think they're making another dodgeball movie. I thought, well,
Scott Benner 1:16:11
that, hey, good. That was a good movie. It was terrible, but it was fun, and it had a story arc. It wasn't a good story arc, but it was a story arc, and I could follow it, and it made sense. They threw wrenches at people. It was a good time. Yeah. What was that other movie you made that was great that nobody could ever make anymore. We're my god. Robert Downey is in black face. Oh, Tropic, Tropic Thunder. Fun movie, yeah, I don't think that one plays anymore, but fun movie. Yeah, he needs to get back to it. You know what? I mean, yeah, I'm very upset, John. Tell me something you do enjoy watching. That was a weekend gage your we
John 1:16:51
really liked
Scott Benner 1:16:52
the pit on HBO. The pit was awesome. Yeah? That was refreshing. Absolutely, a thrill ride of adrenaline. Yeah, yeah, it played out honestly, yeah, yeah, yeah. Little good, little bad, little high, little low, very human. All made sense. A fcking goat didn't wander through it for no reason. When people were shooting, they didn't go to where the people were shooting, they left where the people were shooting. That all makes sense, doesn't it, right? Yeah, he was on the other side of the door. He's been looking for this lady for years. He saved her. She was attractive. She wanted him to come. The other woman was saying, I'm a bad person. We have no life together. And he went, Yeah, I'll go with you for the nine more seconds that we'll get to be alive together. God damn it, John, it didn't make any good sense. Oh, my God. And you're all out there. I see you in the group telling me it's a good show. It's not, don't stop listening to the podcast just because I don't like severance, by the way, no, of course not. I'm talking to everybody. John, that's you. I got a thing. I got more than 20 people listening. I got to keep everything going. You know
John 1:18:02
what? I mean, yeah, you've got me already, so you can't lose me. Thank you, John.
Scott Benner 1:18:05
Appreciate it very much. Is it too late to pivot back to something serious? No, of course, of course. One thing I skipped over, I know your last name. How much of your weight is cultural? Do you think I
John 1:18:17
know? You know and I'm Hispanic, and Hispanic culture, I mean, we do tend to be heavier, but, I mean, my parents are both, I would say average. My dad actually is in pretty good shape. My grandparents were. We're all not like arbidly obese. So I don't know, not, not a lot. I don't think, I mean, who knows what's past them, but, but, you know,
Scott Benner 1:18:38
Let me stretch the question out then, like, is your situation lifestyle, or do you think it's wiring, or do you think it's both? Or what do you like you listen to me talk about like, how I ate before, but it wasn't terrible. It wasn't great, but it wasn't terrible. It certainly didn't warrant that much extra weight on me, the medication. What do you think? Where do you think you fit into that cat, into that puzzle.
John 1:19:01
I think it's both. I you know, now, I think everybody goes through this when they're young, like, you know, when I was 20. I mean, you know, yeah, of course. You know, pizza, Taco Bell, you know, take out. I mean, that was the norm. But back then, I mean, you could do whatever you want, and it wouldn't do anything to you. But maybe since we've had the kids, or since I've been married, we've been married for 15 years. I mean, we'll splurge and we'll have moments where we go out and, you know, have something that maybe we shouldn't or I would say, for the most part, we eat pretty healthy, and we try to do just stay as low as carb as possible. Obviously, not. We're not keto or low carb, but we try to, you know, do it as much as we can. So I think it's a little bit of both. I do like to eat like I like to snack. Now, we don't have the, you know, much snacks in the house, you know. So, I mean, the stuff I get is not, I wouldn't classify it as junk food, you know, I am a snacker. But no, I mean, other than that. I mean, I take, I was telling my wife the other day, we were in the car, and I was driving to her, and I was like, you know, I have eggs. For breakfast, I have a salad for lunch. For dinner, we make something, you know, sensible, a meat, you know, a protein, a vegetable and maybe a starch. I was like, we're not getting McDonald's every day. You know, it's, yeah, it's, that's part of what makes it frustrating
Scott Benner 1:20:14
as well. Well, I think that Jenny and I are recording a nutrition series right now. It's not out yet, but we're recording it. I mean, there is a lot of bad processed foods. There's a lot of sugar and stuff that you don't realize, like, that kind of stuff, but I hear what you're saying, like, of what's available to you. You're not running into the like, the fast food direction, like that kind of thing and it and you are trying, and nothing happens. And then you use that medication for six months and lost 40 pounds, right? That's a significant amount of your body weight. Yes, you know, like, so I think there's something else at play first, you know, listen, I don't again. I'm not a not a doctor. Barely got through high school, like, but like, I can tell you that I started on, we go V, and four days later, I'd lost 10 pounds. Does that make any sense to anybody? No, not at all. But it didn't make any sense to me. And I was like, this is weird. And I told the doctor, doctors like that shouldn't even be working yet. I'm like, I don't know what to tell you. I injected it and I woke up four days later, like, more than temp, like around 10 pounds. I don't remember. It's two years ago now. I lost a lot of freaking weight. It also doesn't make sense that if I missed the medication for, you know, a 24 hour gap that I put two pounds back on, unless it's doing something for me that my body should be doing, that it's not doing, right? You know what I mean, like, so, I don't know, man, like, listen, I think take that planning part of you and plan on how to get to the bathroom while you have diarrhea. Okay? Because, yeah, I think I might have to just do that, yeah, because 100 pounds from now, right? You're gonna be like, okay, like, Listen, if your pancreas explodes, then obviously, no, but 100 pounds from now, I think you're gonna look back and go, it was worth it, right? That's how I felt like we went away on a little break to take Arden from one school to another, and it was in the middle of me not feeling well, like while I was doing this, and there were adjustments. Like, we went out to a lunch one day, and I got done lunch, and I looked at Kelly, and I said, I know you guys are going to go walk around. I'm going immediately back to the hotel, because, like, something horrible is about to happen. And I felt fine, but I just knew it was coming. And so, like, I just planned around it for a while, and eventually it stopped. So I can give you some ideas about how to help it stop if it keeps going. But, you know, reach out to me if you if you get back in that position again. Absolutely, John, you were awesome. I appreciate you listening to me talk of badly about a TV show that you enjoyed. I'm sorry about that. The Rookie is garbage. I know that. I'm not saying otherwise, but there is something lovable about Nathan Fillion. And if you don't see it, I don't know what your problem is. Okay, it's Canadian. Just check it out. He's darling. Oh, John, listen, it's terrible. It's over acted. It's over baked. It's big for no reason. In places it doesn't make sense, you know, they wrap the whole thing up in six minutes. You know, it's like, there's a serial killer. 75 people are dying on a spaceship, and then, like, five minutes. So you're like, we fixed it. It's over because it's not good, as I'm watching it, it's not good. It ends. My wife hates it, but we watch it together. This is how she makes fun of me for the stuff I make fun of her for, and it ends, and she'll go, that wasn't a particularly good episode. And I went, No, and that's really saying something, because the best episodes, at best are the A team. You know what? I mean. You're too young for the 18 Hold on one second.
For me, the podcast episode that you just enjoyed was sponsored by ever since CGM. They make the ever since 365 that thing lasts a whole year. One insertion every year. Come on. You probably feel like I'm messing with you, but I'm not. Ever since cgm.com/juicebox
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