#1591 The Sweetest Irony

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Renee, 66, has lived with T1D for 41 years—ironically, her dad was a Louisiana sugar cane farmer. She wonders if childhood head trauma from a severe bike accident played a role.

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Scott Benner 0:00
Here we are back together again, friends for another episode of The Juicebox podcast.

Renee 0:15
My name is Renee, and I've had type one diabetes for 41 years.

Scott Benner 0:21
The podcast contains so many different series and collections of information that it can be difficult to find them in your traditional podcast app sometimes. That's why they're also collected at Juicebox podcast.com go up to the top, there's a menu right there. Click on series, defining diabetes. Bold beginnings, the Pro Tip series, small sips, Omnipod, five ask Scott and Jenny, mental wellness, fat and protein, defining thyroid, after dark, diabetes, variables, Grand Rounds, cold, wind, pregnancy, type two, diabetes, GLP, meds, the math behind diabetes, diabetes myths and so much more, you have to go check it out. It's all there and waiting for you, and it's absolutely free. Juicebox podcast.com. Nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan. This episode of The Juicebox podcast is sponsored by the twist, a ID system powered by tide pool that features the twist loop algorithm, which you can target to a glucose level as low as 87 Learn more at twist.com/juicebox, that's twist with two eyes.com/juicebox. Get precision insulin delivery with a target range that you choose at twist.com/juicebox. That's t, w, i, i s, t.com/juicebox. This episode of The Juicebox podcast is sponsored by the contour next gen blood glucose meter. Learn more and get started today at contour. Next.com/juicebox this episode of The Juicebox podcast is sponsored by Medtronic diabetes and their mini med 780 G system designed to help ease the burden of diabetes management, imagine fewer worries about Miss boluses or miscalculated carbs thanks to meal detection technology and automatic correction doses. Learn more and get started today at Medtronic diabetes.com/juicebox

Renee 2:25
My name is Renee, and I've had type one diabetes for 41 years. I guess the most ironic part is that my father was a sugar cane farmer in South Louisiana.

Scott Benner 2:35
Your father, your father, farmed sugar cane. Yes. Were you eating it

Renee 2:40
constantly? I would say, every meal in our house had a dessert, lunch, dinner, almost

Scott Benner 2:47
Renee. You can hear the people sitting right now going, sugar doesn't cause type one diabetes. This lady, she's had it for 41 years. She doesn't they don't know you're joking. That is ironic. It really is. It is. What's it like growing up on a farm?

Renee 3:02
You know, when you're young, you don't like it, but in hindsight, looking back, it was really a great

Scott Benner 3:07
life. Yeah, were you involved in the farming at all as the cat? No, no,

Renee 3:12
not at all. I'm the fourth out of five girls. My dad is actually a fourth generation sugar cane farmer, but having no boys, he ended up selling the farm, so it's it, and he's deceased now, so it's no longer in the family, but

Scott Benner 3:26
you're the fourth out of five regrets that he has, because no one can take that business from him, right?

Renee 3:31
Absolutely not he. We always say that we were his princesses and he was our King.

Scott Benner 3:39
That's lovely. Were None of the girls interested in farming, or is it, like, it wasn't a thing, where he's, like, he didn't think, I didn't have a boy, so they can't do it, right? Like you guys just weren't interested, right? Yeah,

Renee 3:49
it's a hard I mean, farming is a hard life, and especially in South Louisiana with hurricanes coming through and, you know, wiping out your crops.

Scott Benner 3:58
So your father's had times where he's seeded an entire crop, brought it up. It's been ripped apart. He's got to take the field back down, put it back together again. You don't make money that time like that. That's happened more than once in your life. Yes, wow, jeez, that's not fun. I do know that I vacationed on St John once or twice in the Virgin Islands, and I think that's they used to grow sugarcane there too. What is it about the humidity? Is that what it likes,

Renee 4:23
it does have to be hot, so like Florida and I think Louisiana are the only states, and maybe a little bit in Texas, that grow sugar in the United States. Now there's lots of states that grow sugar beets, but that's a totally different sugar than sugar cane sugar.

Scott Benner 4:38
Sugar, yep, I want to say, right now, my sister in law's dog is named sugar. Oh, he looks like he's had too much sugar. I just want to say that very fat dog. As a matter of fact, sometimes I see the dog walking around. I think, how is she moving? But that's a different story. 41 years. How old are you now? I

Renee 4:55
am 66 so I was 25 years old when I was diagnosed.

Scott Benner 4:59
First No kidding, did anyone else in the family have type one?

Renee 5:03
No, nobody. My grandfather had type two diabetes, but nobody else in my family has had it

Scott Benner 5:12
other autoimmune stuff. No, not you even. Not any sister, nothing like that.

Renee 5:17
No, now I have. There are 37 first cousins on my dad's side of the family, and one of my cousin's grandsons has recently been diagnosed with type

Scott Benner 5:27
one. How old was he when he was

Renee 5:30
diagnosed? Like seven or eight?

Scott Benner 5:32
Younger child, I'm sorry, how many first cousins? 37 how many of them do you think you could name off the top of your head, if you had

Renee 5:39
to? Oh, well, probably all of them. We just spent some time with one in Switzerland. No kidding.

Scott Benner 5:44
Wow, that's lovely. I don't have that. You're making me jealous.

Renee 5:49
Well, I think growing up on the farm next door to my grandparents, the cousins who lived in California, Wisconsin, we saw them every summer when they would come visit for a month. So and everybody else lived nearby. Oh,

Scott Benner 6:01
so the farm was almost like a resort for the family. Yes, yeah. I guess you kind of come and hang out and do family things that's really, that's really something else that's great. Are all your sisters living?

Renee 6:11
Yes. In fact, out of the 37 of us, only one cousin has passed away.

Scott Benner 6:18
My god, you guys are strong. Yes, seriously,

Renee 6:22
yeah. And now I will tell you my dad, there were eight of them, and two of his siblings died of cancer, two females, two sisters, early in life, and then the rest of them have had Alzheimer's. But I personally think that it's we all think it's environmental, because none of us are showing signs of Alzheimer's.

Scott Benner 6:41
How did they grow up on that farm as well? Yes, they

Renee 6:45
did, but you did as my dad and his siblings grew up pretty much on the farm. What

Scott Benner 6:49
do you think is about the is it like chemicals or what do you think it is?

Renee 6:54
Yeah, I do. And I mean, I don't, haven't done a true study on it, but I mean, I think that when they were young, and they were spraying the fields. They played outside when we were young, and they were spraying the fields we were brought inside. We couldn't play while they were spraying the fields near

Scott Benner 7:10
us. Just that one generational of like, hey, maybe we shouldn't let the kids run through that. Yes, hey, that stuff we're spraying on the ground that seems to kill everything. Why don't we keep the kids out of that. Yes, yeah, no kidding, huh? Oh my gosh.

Renee 7:24
And, you know, Scott, one thing too, is, I don't know if you've heard that there's a correlation between head trauma and diabetes.

Scott Benner 7:31
Really, I know head trauma and like, like behavioral stuff, but about between in type one, yes.

Renee 7:38
And I had a nurse tell me that who was drawing blood. This was years ago, like, probably 30 years ago, but normally it's a quick court like, you know, you'll and Mark, my husband has had two patients who, like, one was hit in the head with a golf club, and a few weeks later, diagnosed with diabetes. I can't remember the situation of the other one, but I mean, I did have head trauma. I was in a bike accident, and I had an eyebrow bone shatter into my brain. I was in the fourth grade, and then I didn't have diabetes until it was 25 so I don't know if there's a correlation, but, you know, the nurse shared that with me, and I thought, hmm,

Scott Benner 8:18
I'm watching our overlords go through it right now. It's going to give you an answer in a second. I found a range of articles. Hold on. Let's see what chatgpt comes up with. It's doing a deep dive on the question, What did you run into with your

Renee 8:30
bike? Our little town of Franklin was having it sesque continuum. I was in a bike racing. Somebody's front tire hooked onto my back tire and threw me onto a parked car, and that's when bumpers were made. That's

Scott Benner 8:43
when they make cars out of metal, not now, this is plastic and plastic, and there's like some metal in the middle, and somehow they're stronger. Now, isn't that crazy? You can have an accident in a car now made out of plastic and be better off than when you were in one of those tanks. Don't get me started, Renee, like I will, just because of your age, I will start a 10 minute conversation with you about how much better automobiles are now than they were before, because I think people who are younger deserve to know what it's like to drive in a car where air is coming up from the ground

Renee 9:15
and and you're sitting facing backwards,

Scott Benner 9:20
air just coming through the cracks the doors, like, right now, I hear people say it's almost silent inside of my car. I'm like, Yeah, imagine you would drive on a rainy day, and you'd look down, there'd be water on your hand, you know? And then it'd be like, Why didn't you guys go anywhere? Go Anywhere. Here's what chat GP came up with. It wants you to know that it thought for one minute and 24 seconds. Oh, does seconds. Oh, physical head trauma, concussions, PBI, skull fractures, etc, has not been shown to trigger the autoimmune attack that causes type one diabetes. Head blows can cause a different disorder called Central diabetes insipidus, a water balance problem that happens if the hypoth. Thalamus, posterior pituitary or damage CDI shows up in about one in six acute head injury cases develop hormone problems. It has nothing to do with insulin or blood sugar control. Psychological trauma or extreme stress is another story. Several population studies, including a 10,000 child Swedish cohort, Link several life events, near death, death in the family, serious accidents, with roughly a three fold higher risk of later type one diabetes, presumably by revving up stress hormones and immune pathways in kids who already carry the right genes for type one Okay, there you go. That's a bit of a cancer, yeah, of course,

Renee 10:37
because I will tell you, I think extreme stress is what triggered mine.

Scott Benner 10:41
Renee. A lot of people come on here and tell stories like that, seriously, a 10,000 person study linking death in the family, serious accidents with roughly a three fold higher risk of later type one diabetes, and that's pretty

Renee 10:55
significant. Yes, yeah, I think I mentioned to you I had just moved back to Louisiana from living in Washington, DC, and it was such a stressful time really, in my life, and that's when I was diagnosed. What

Scott Benner 11:06
were you in DC for? For school? Were you lobbying the sugar lobby? What were you doing up

Renee 11:10
there? No, my dad did that. I was up there. I worked. I moved there after college, and I worked on the Hill for two years, and because my dad was up there so much, this is funny. He said, If you're not married in two years, you're coming home. So guess what? Found the guy, I wasn't married in two years and I moved home, you had to come home. Did

Scott Benner 11:33
you look? Did you take that seriously? Do you like it there enough to think about marrying somebody just to stay

Renee 11:38
No, no, okay, no. That's a whole nother part of my journey, Scott, that I'm just not going to share

Scott Benner 11:43
with you. Oh, okay, that's fine. You don't have to. We'll let it go. I'm sure this is gonna be the best part of the story that nobody hears, but it's okay. I'd love to know what this boy did. Do you have your own kids?

Renee 11:56
I do not have children. Okay? On purpose? Yes, it was a choice because of diabetes and the age that I was, and my husband actually had an Air Force commitment and was sent to a small base, and they said they just couldn't handle somebody with a pregnancy with diabetes, that I would have to go to a bigger base. I was probably, I guess, I was 34 and then by the time he got out, I was 39 so, but that's a whole nother story, and I'm fine not having children. I mean, it's what God has given me. But I do think that knowing how well I've done with my diabetes, that I would have taken that chance you would

Scott Benner 12:38
have done is it a disappointment for you? No, no, okay,

Renee 12:42
no, I have plenty of time to invest in other people's children, and it's just so fun for me. Well, you also have

Scott Benner 12:49
plenty of children to invest in. It sounds like running around there. So it's a lot of kids and cousins, and they must have kids. And, my gosh, okay, all right, now that's fair enough. So talk about being diagnosed 41 years ago. What was management like for you? The contour next gen blood glucose meter is sponsoring this episode of The Juicebox podcast, and it's entirely possible that it is less expensive in cash than you're paying right now for your meter through your insurance company. That's right if you go to my link, contour next.com/juicebox you're going to find links to Walmart, Amazon, Walgreens, CVS, Rite, aid, Kroger and Meijer. You could be paying more right now through your insurance for your test strips in meter, then you would pay through my link for the contour next gen and contour next test strips in cash. What am I saying? My link may be cheaper out of your pocket than you're paying right now, even with your insurance, and I don't know what meter you have right now. I can't say that, but what I can say for sure is that the contour next gen meter is accurate, it is reliable, and it is the meter that we've been using for years. Contour next.com/juicebox and if you already have a contour meter and you're buying test strips, doing so through the Juicebox podcast link will help to support the show. The brand new twist insulin pump offers peace of mind with unmatched personalization and allows you to target a glucose level as low as 87 there are more reasons why you might be interested in checking out twist, but just in case that one got you twist.com/juicebox. That's twist with two eyes.com/juicebox. You can target glucose levels between 87 and 180 it's completely up to you. In addition to precision insulin delivery that's made possible by twist design. Twist also offers you the ability to edit your carb entries even after you've bolused. This gives the twist loop algorithm the best information to make its the. Decisions with and the twist loop algorithm lives on the pump, so you don't have to stay next to your phone for it to do its job. Twist is coming very soon, so if you'd like to learn more or get on the wait list, go to twist.com/juicebox. That's twist with two eyes.com/juicebox. Links in the show notes. Links at Juicebox podcast.com.

Renee 15:19
Wow. Wow. It's so different. Scott, as you know, I mean, it was injections. I called it the insulin cocktail. You were supposed to test yourself all the time. In all honesty, I only tested myself about three times a day. I was terrible. I would give myself injections through my pants, and unfortunately, I never developed an infection. But it is so different than having type one diabetes now and how we manage it.

Scott Benner 15:50
Yeah, so you're doing what, cloudy and clear are you mixing like, drawing a little of this up, little that up, shooting it, what, once, twice a day

Renee 15:58
you would combine a long term in a short term,

Scott Benner 16:01
yeah, pop it in, and then you're not really testing, right? You said I tested

Renee 16:06
three times a day with, what, with a testing machine, the good old finger pricks, you

Scott Benner 16:12
needed a bunch of blood. It took a while to come up with it. Like, are we talking about that far back? Yeah, yes. I mean, do you look back now and think, were those devices accurate, or were they good enough? What's the only thing that you knew? Yeah. How would you know? Yeah. Do you know what your outcomes were like back then? How were they keeping track of your health? Well,

Renee 16:31
I mean, we still had hemoglobin a one CS, right? So I'd say back then, my hemoglobins were probably more like, I think the highest my hemoglobin agency has ever been was 8.8

Scott Benner 16:44
Okay, that's not bad at all. I mean, considering the time, right?

Renee 16:48
Yes, yes. But also, I'm fairly active. I think that helps too. But the hard part too is not knowing when you're having a low, because even now, I will be 44 and still fully functioning.

Scott Benner 17:05
You don't have any feeling that you're low that your whole life,

Renee 17:08
none. So that's why the continuous glucose monitor is probably a lifesaver for me at this point. But back then, I would be 40, you know, whatever. I don't even know how low I would get when. Then I couldn't see, I couldn't think, you know where I am. So that was probably, to me, the most scary part. It was the lows, not the highs that were so hard on me before the continuous glucose monitor came

Scott Benner 17:33
about. And how long have you had a CGM for? Oh, gosh,

Renee 17:37
I don't know, maybe just five years.

Scott Benner 17:40
No kidding. Do you think some of the way you came to an eight a, 1c or a seven a, 1c was by being low all the time and not realizing it? Yes, yeah. And I learned that from you. Oh, geez, sorry. Must have been a sad day. No, no, seriously, what does it feel like the day you hear that and go, Oh, I thought I was doing okay.

Renee 18:00
Yeah, I mean, that was an eye opener when you said that.

Scott Benner 18:04
Oh, geez, I feel bad about that, almost. Was it? Did it stick? No, no. Do you have any complications?

Renee 18:11
I have no complications. I was diagnosed in Baton Rouge, and then I moved to DC, and I had a very kind of crazy job there, and my doctor, my endocrinologist there, said, Renee, diabetes is a game, and I can teach you how to play to win. Interesting. What did he teach you? Well, he said, I know. He said, I want you to eat whatever you want. Now, this is probably different than how we would approach it now, but it worked for me back then. He said, I want you to eat what you want. I want you to do. I want you to eat when you want. You should continue being active, he said, but I want you to test more. Wink, wink. And he said, so. I mean, if I was having a late meal at eight o'clock or nine at night, I would wake myself up later, at midnight to see what my blood sugar was. He said, If you're you just need to be testing more after these events to be able to bring it down. Because there was, you know, I mean, it was all testing and adjusting with insulin.

Scott Benner 19:17
So his idea was, live your life, but a couple of hours after you eat, test your blood sugar, and if it's high, give yourself more insulin. Yes, that's pretty thoughtful for back then actually, are you at that point on a faster acting insulin when you or with this doctor, I'm sorry say that again, which insulin were you on at that point? Oh, I was, I was on the cocktail, still the CO Oh, so he would just have you give more of the mix. Yes, okay, yes. This was not like he wasn't talking about Humalog or something like that. Yeah, no, okay, I don't

Renee 19:49
think I went on Huma log until I went on the pump.

Scott Benner 19:52
Really. What would that be like around the 1990 or something like that?

Renee 19:56
See, we had moved to Greenville, so you. No, that would have been probably like 1998

Scott Benner 20:04
No kidding. Okay, so pumps were available for a bit, and that fast tracking insulin was available for a while, and you still weren't using it right. Interesting. So there was no feeling of like I should move up to a faster insulin for the only reason you did it is because you moved to an insulin pump. Yes, interesting, and so did that work? Did the I mean, obviously you're doing well, but like you know, did you keep up with that? I mean, did you wake yourself up after dinner every night? Did you keep testing? Well,

Renee 20:31
not every night, but if it was a late night, there was a big event, and I ate a lot more than I would normally eat. Then, yes, I did.

Scott Benner 20:39
Did you find yourself needing more insulin? Usually, yes, okay, and you gave it to yourself. But did you get low later? Would you wake up in the morning? Low? Usually not. Okay. So not enough to, like, crash down? Yeah. So now, in a more modern world, in 1998 when you get a pump and you're using a fast track to insulin, what's the transition like? Because you did that a good long time with that cocktail. So what's the transition like about counting carbs and covering meals that way? Today's episode is sponsored by Medtronic diabetes, who is making life with diabetes easier with the mini med 780 G system. The mini med 780 G automated insulin delivery system anticipates, adjusts and corrects every five minutes. Real world results show people achieving up to 80% time and range with recommended settings, without increasing lows. But of course, Individual results may vary. The 780 G works around the clock, so you can focus on what matters. Have you heard about Medtronic extended infusion set. It's the first and only infusion set labeled for up to a seven day wear. This feature is repeatedly asked for, and Medtronic has delivered. 97% of people using the 780 G reported that they could manage their diabetes without major disruptions of sleep. They felt more free to eat what they wanted, and they felt less stress with fewer alarms and alerts you can't beat that. Learn more about how you can spend less time and effort managing your diabetes by visiting Medtronic diabetes.com/juicebox,

Renee 22:14
so I went on the mini med originally. I mean, it was just, it was a game changer, Scott, and that was before the continuous glucose monitor, being on a pump was a game changer for me. How just knowing that my body was constantly getting that basal rate of insulin there was it was just a comfort level, I guess, I don't know. I guess I really haven't thought about it, except that, now that you asked me, but it just changed

Scott Benner 22:50
my life, things were easier. Yes, absolutely, yeah, you feel more in control and less like it was happening to you.

Renee 22:58
Yes, and then also, I mean, you know, you're not carrying insulin around with you and syringes all the time because it's on. You get

Scott Benner 23:05
a little pharmacy in your pocket when you were, yeah, before and all that goes away.

Renee 23:10
So much freedom. I just felt there was so much freedom when I moved, even

Scott Benner 23:16
just not having to inject, I would imagine, would have been a big deal, right? Yeah, just to push the idea of pushing the button was probably exciting. Probably exciting. Yes, yeah, I know I hear that. Okay, so that's 98 when do you find the podcast? Oh, gosh. When did you start? I started making the podcast in January of 2015,

Renee 23:36
2015, okay, so let's see. So probably, actually, I think your first podcast I listened to was the third episode. No kidding, a neighbor told me about it. Yes,

Scott Benner 23:50
you've been listening for that long, or you'd started at

Renee 23:52
now, okay, I binge listened. So I listened for a while, then I stopped listening, and then I've listened so but yes, y'all had just, you had just started when I first started listening, and in all honesty, I probably listened a couple of times, and then I didn't listen for a couple of years, and then I would listen again. And I think I told you that I was interested in moving to a keto diet, and I did some research on keto and diabetes, and your podcast was the first one that came up, and that was a year and a half ago, I guess. So I listened by I really binge listened for a couple of months.

Scott Benner 24:31
Oh, so wait, so you listened for a while, stopped, but then, like, looked for information, then found the podcast again and went back to it. Yes. Oh, interesting,

Renee 24:40
yeah. And I do recommend it to anybody I meet with diabetes. I'm like, You need to listen to

Scott Benner 24:45
thank you. I appreciate you running around acting like a crazy person, telling people listen to my podcast. You ever think about it from the other side? They're like, Oh, I have a diabetes. I've had it for 30 years. The lady says a podcast will fix it.

Renee 24:59
I. But you know what, Scott, I think I had told you that, you know, the thing about having diabetes is that it's a disease that you can control. But I want to correct myself on that, because it's a disease that we can manage, not control. Yeah, no, you and Jenny have, I mean, y'all have given me so much insight on the advancements of diabetes and diabetes care and how to play the game to win, you are helping me so much. Just manage the disease in a new way.

Scott Benner 25:38
I'm very glad don't make me cry it's early in the morning. Okay, that's wonderful. I think my motivations, they exist in different spaces, obviously people with kids. I think about us being young and art and being young and us not knowing what we're doing, and I think like, maybe this will stop people from feeling so lost the way we did, and and propel them more quickly into decent information that they can they can figure out and apply to their own lives. But for older people, or people who had type one for longer times, especially those of you who've come out of like, regular mph, cloudy like that world before, CGM before, pumps who were told things like, you know, just shoot it in the morning and then go head up out your day if you get dizzy, you know, drink a coke. Like, if that was your whole life for you guys, I think about my friend Mike, like all the time. Like to hear what you just said is so touching and fulfilling for me, and at the same time it will, like later today, make me feel like, how come I couldn't get Mike to listen to me about this? It's not that I was trying so hard, and he just was like, I'm not listening. I tried a couple of times, and he seemed resistant, and because we had a personal relationship, I did not continue to push him. But I have no trouble jumping on this microphone and being pushy to 10s of 1000s of people listening that I don't have any trouble with, but with him, I I just stopped, you know, like I'd bring something up, I'd give him some good information. And I look back now through the lens of all of you and your and your stories, and I realize, like he wasn't being resistant, like he lived his whole life like that. He didn't know any better. I was saying completely foreign stuff to him, and he wasn't ready to try to do it. And, you know, caught up to it,

Renee 27:21
that's so hard to understand too, because I think I told you that as far as chronic diseases, I just can't complain about having diabetes, because it is one that we can manage. And my friend who diagnosed me when she was in medical school, she ended up dying of lupus. She was diagnosed six months after me, and spent most of her life on disability. And then our 38 year old neighbor next door died of cancer. I mean, those are diseases that you cannot manage, but Scott, you can manage diabetes. Yeah, you

Scott Benner 27:59
have a different perspective. Renee, you have a mixture of personal experience with your friends, and you have the knowledge of like, that hard work that it must take to run that farm. Those are different perspectives, I'll tell you. Like one thing, I was always stunned about Mike. He was so bright and articulate and a reader but but also extroverted, like, he wasn't, like, lost in a book, kind of a guy, you know, like, but he, he read voraciously. Was very intelligent, thoughtfully, had all kinds of good ideas. He never really tried for much. And I think that's the diabetes, and because it hit him when we were, like, right, coming out of high school, and I thought, man, like, Mike was on his way to something, and then all of the sudden, we're adults, and he's working, like in a laboratory, moving results around a computer. And I was like, God, it's weird that this is him, but I wonder how much of that was. Well, there's health insurance here, and it's steady, and I work inside, and I don't have to, like, you know, you mean, like, I wonder, I have always wondered, how much of his diabetes, like, re focused him, you know, and maybe the dumb luck of just when he was diagnosed, right? Like, you're what, you're 19 years old, you don't know what you're doing, like, you know, you're just starting to get out into the world trying to figure stuff out. This gets run over. I remember what he was told, which was nothing. You know, he shot his regular mph twice a day, and Mike was the guy that got dizzy, and we didn't let him drive after five o'clock if we all went out together, because he would inevitably, like, swerve off the road. He just wasn't that person prior to that. And then, you know, there's no, no real good advice from his doctors, no real good advice from his family. They don't know what the hell like. You know, they're not they're not. They don't know what to do. And he just like, I don't know. He just his life changed. And I take hear you say that you know you heard something here that helped you. Makes me think that other people will too.

Renee 29:54
I mean, I think I have a huge responsibility to take care of myself, to be healthy.

Scott Benner 30:00
Healthy, right? I agree.

Renee 30:03
So, yeah, I'm part of that right now. Is listening to your podcast

Scott Benner 30:06
awesome, but, but again, do you think maybe you feel that way because your close friend got lupus and passed, and you've seen disease take people where there was nothing they could do to slow it down? Like you feel like you have an opportunity here that they didn't have, is that, right? Absolutely? Yeah, well, that's

Renee 30:23
perfect, absolutely. And, I mean, I know that there are a lot of complications with diabetes. I told you, I'm 66 and I have no complications. I mean, I've been going to the same ophthalmologist for 3030, years now, and I saw him two months ago, and he goes, wouldn't know you were diabetic. Renee, by looking in your eyes.

Scott Benner 30:45
Say, Thank you. I appreciate that. That's what we're shooting for over here. Yeah,

Renee 30:50
and you know, Dr Weber, when I turned 60, so you know, six years ago, she walked into the room and she said, Hey, I bet when you were diagnosed, they told you that you wouldn't live this long. And I was shocked when she said that, because that is what I was told. And I just looked at her and I said, Yes. And she goes, Well, I'm just telling you, you and Mark, need to continue planning. You've got a long life to live. That's

Scott Benner 31:13
awesome. Hey, listen, there's an episode in this podcast where a lady was, you know, long time ago, decades ago, at college, when she was diagnosed, and her doctor that diagnosed her told her to quit school and go home because she wouldn't live very long. Wasn't going to be part of the workforce, and no man was going to want her. Those are like quotes that's in our lifetime. It's in your lifetime that somebody was told that. So it's just that things change so drastically, you know, and people's understandings, I mean, it's what it is. It's the it's the faster acting insulin, it's better delivery system, and it's glucose monitoring. Those are the things, right? Yeah, yeah. And then now, the idea now is to, like, you have to get that out into the world so that people understand it. That seems to be the slipping point, because, you know, for you and the other people listening, you know, it's great, we all know, but there's far more people living with type one diabetes who don't know anything about this. Like I'm continually stunned by the sheer number of people who tell me that just the idea of pre bolusing for their meals, that how much that changed their life, and that no one ever said that to them before. That means that no one ever discussed with them the timing of their insulin. So they don't know how the insulin works, and they're using it multiple times a day. I don't know how that happens, you know, but it does,

Renee 32:33
right? One of your tips that I use is work from home. I'm not working. I've retired now, but after lunch, if I would get a little bit high, and I would go for what you call free insulin, I would just go for a walk around the block a few times. Yes,

Scott Benner 32:49
take a walk. Let's see the blood sugar come down a little bit. That's something that I'm sure I would have picked up along the way. But I remember the first time somebody said it, and I thought, oh, that really works. That's crazy. Like, I didn't know, like, I didn't know any of the things when it started. You know what? I mean, it's a completely new world. But then there was this guy, Manny, and he starts this thing called the Big Blue Test. And he just went online, said, everybody test your blood sugar, and then go for a walk and then come back and test it again, and then come back online and write it down. And everybody did that. And I was like, Oh, now walking around, major blood sugar go down. Awesome.

Renee 33:22
Yeah. And Scott, you know, of course, you're always talking about Orton's blood sugar, you know, because you follow it. And my husband follows mine too. So he would be at the office at work, and I'm here, and he, he'll text me, your blood sugar's high. You need to go outside for a walk. He's

Scott Benner 33:38
trying to stay alive and do some stuff. I mean, you're you're retired at 66 That sounds nice. I might do that. Can I do that? I would like to do that. How, when did you How old were you when you retired? I was 64 did you do it willingly, like, excitedly, or was it a thing where they were like, Okay, that's enough of you. Renee, no, yes, I did it willingly. Are you enjoying the time?

Renee 34:00
Oh, absolutely. And my husband just retired. Nice, that's lovely. Yeah, yes, he retired a little bit early, just because you never know what's going to happen, right?

Scott Benner 34:11
Yeah, you want to spend time, right? Like times, most it's the only thing you really have. Are you guys traveling? Or are you what are you doing? He

Renee 34:19
retired in March, and we just got back from a three week trip to Switzerland and Germany.

Scott Benner 34:24
See, that's what I want to do. That sounds right. Okay, all right. That's

Renee 34:28
my did. Okay. We walked about 20,000 steps a day, so I did pretty good with my

Scott Benner 34:34
blood sugars. Did you have lows you had to work on? Yes,

Renee 34:38
and some highs, just because, just eating different things that I normally don't eat wasn't quite sure about the carbohydrates and so but it was good

Scott Benner 34:48
41 years later. Does that hurt your time, the time you had on your trip? Like, what do I mean? Like, do you sit down at dinner, at lunch in Switzerland and think, oh, here we go. I don't. Out of Bolus for this. This sucks, or Does it almost feel like a game? Are you sort of, like, I wonder if I get this right, like, is it still, is it impacting you? I guess

Renee 35:08
again, I know I would make, I would try to make good decisions about what carbohydrates I was going to eat. I did. It's hard to stay away from breads

Scott Benner 35:19
because you love bread? Oh, I did,

Renee 35:21
but I wouldn't say it's a constant reminder every time I have to Bolus, but I mean, it is part of what you have to do, right?

Scott Benner 35:30
I'm wondering, is it like, is every meal still like, oh, I have diabetes, or do you not think of it that way? No, I don't think of it that way. Okay, Arden and I sat down to eat yesterday together, and we were talking, so, you know, we were just chatting, and, you know, like you would, and we got caught up in the conversation. And the food arrived, and she picked up her fork and she started eating. And I watched her go, uh, and let not like, disgustedly, just like she remembered. And she picked up her phone, and I said, What's wrong? She goes, I have diabetes. I forgot. And and so she gave herself some insulin and put her phone back down, and then we started eating.

Renee 36:07
That's a beautiful thing. I have diabetes and I forgot. Yeah, it doesn't

Scott Benner 36:11
seem like it burdens or now there are times when it does, like, you know, like, there's times when I

Renee 36:16
Yeah, right. I don't want you to think every day of my life I'm like, I have diabetes. I mean, there are definitely times where it's like, Ugh, this grind, right? And it's that's usually spells of, you know, when I'm high for a few days and can't figure out why, or, you know, whatever. But I mean, overall, again, I'm not going to complain about having diabetes, I try not to complain. Try not

Scott Benner 36:44
so you had a nice trip. You walked around. What'd you keep with you? In case you got low glucose tablets, you just go with the tablets,

Renee 36:50
tablets. And I did, I mean, depending on where we were going and what we were doing, I did have protein bars. Okay, okay, I'm gonna conf. I do have a confession? Okay, go ahead in Europe. So I talked to my endocrinologist, I mean, long discussions about, what do I need to bring in case there's failures of anything? So I do have a backup controller. I always have that with me. And we talked about, you know, she said, Now, Renee, if your pod malfunctions, you've got two hours. So she said, if you're going to be hiking, I want you always to have an extra pod with you. So I'm like, okay, so bought a special purse so that I could, you know, have that with me at all times, Scott, we were going to something called Young foul, and it was a two hour train wide up there, and we were going to spend an hour, and then we were coming back down. We were on the last connecting train when my pod malfunctions, and I realized I had switched purses and forgot to put an extra pod. Why

Scott Benner 37:57
do you ladies switch purses so often? I don't understand.

Renee 38:02
So I told I said, Mark, and it's pretty it was, it's expensive to go up to young foul. And I said, Mark, I mean, he heard it. He's like, is that your pod malfunction? I said, Yes. And I said, we need to go back down.

Scott Benner 38:15
And he said, there's a doctor.

Renee 38:19
You we've spent too much money on these we're going up. He said, You're going to have to figure out a way to stay active. Okay, so, Scott, we get on the train, and there's these three steps to the train. For an hour up the mountain. I just walked those steps, and my blood sugar was 140 when I got on that train. It was 80.

Scott Benner 38:42
You're like, I'll get it down, even without the insulin.

Renee 38:45
And I told him, I said, Okay, when we get to junfrau, we're not taking any elevators or escalator like we're taking stairs. I mean, it was crazy. Scott and I was not scared, for some reason. It was probably the stupidest decision we've

Scott Benner 39:02
ever made in my life. How many hours were you out after the pot expired? About three and a half. Well, so listen, had you had insulin recently before the before it aired?

Renee 39:13
No, but I had just bought a sandwich for us to eat on the train up, but I was waiting, you know, we were waiting to get on the train, and so fortunately, more importantly, I had not had any food. Oh,

Scott Benner 39:25
okay, so is it earlier in the day you hadn't eaten yet? No,

Renee 39:29
that was going to be our lunch. So that this is probably because about 1231 o'clock,

Scott Benner 39:36
yeah, which pump are you using, dash or using Omnipod five? Omnipod five. Omnipod five. Okay, well, I mean, listen, you have some active insulin going, I would imagine, right? And you're active and you didn't eat anything, so that doesn't it makes sense to me, but

Renee 39:52
by the time you malfunction, you can't see how much active insulin you have. That goes away. Oh,

Scott Benner 39:56
okay, so you're just like, Well, I hope there's some in there that's worked. Me, yeah, so

Renee 40:01
anyway, I mean, I stayed real. I mean, we took stairs. I was like, you know, if we were waiting for something, I'd run up and down the stairs a few times. It was crazy. And then when we got back on the train, coming down, I think my blood sugar was about 120 and I told Mark, okay, we're two hours. I'm just gonna let it go. And once or twice I did get up because I was like, oh, that's creeping up fast. But I was 220 when I got back to the hotel.

Scott Benner 40:28
Okay, I mean, and that's without and now you hadn't had insulin a number of hours at that point. Yes. And how did you feel? I

Renee 40:34
felt fine. I was actually kind of excited to tell you the truth that I was able to keep it down

Scott Benner 40:39
and manage all that. Yeah, he felt, felt accomplished, I imagine, yeah, yeah. Hey, listen, I've seen Arden do that before, like, half an hour left in a movie, and she's got a good blood sugar, and you get a failure. And I'm like, we can go, and she's like, it'll be all right. And I'm like, yeah. She goes, No, yeah. And I've seen it be all right. I've seen it be, you know, you get home and, you know, you change a pump, and it wasn't bad. And I've, I've also seen it like, you know, in different scenarios, like shoot up, not so good. But in the end, I mean, I'm not, I'm not a person out there advocating for you not having insulin. I want you having insulin constantly. But there's a lot of people on this podcast don't take insulin for days, you know what I mean? And it's not a thing that I would tell them to do, but a couple hours maybe, and you're heading up to the thing, and I think you did okay. You know, were you nervous

Renee 41:30
at the very beginning? I was, but until I started doing those steps and I realized, Okay, I can't keep it down if I stay really active.

Scott Benner 41:39
Like, keep out the carbs stay active, right? Like and do your but hey, it worked out for you. That's

Renee 41:43
awesome. I'm sure people were going, what is that old lady?

Scott Benner 41:48
We were on the train, and a crazy old woman just kept walking up and down these three steps. Her husband just glared at her, like, he must, he must see this crazy activity all the time. You're like, over there trying to stay alive. Where's your next trip to

Renee 42:02
well, I'm heading to Louisiana next week to take care of my mother, and then we're going to Michigan this summer for a month. Nice look at you getting around escape the heat of South Carolina.

Scott Benner 42:13
Honestly, my only goal in life is to just be able to escape the weather. As I get older, I think that really is like the thing I'm working toward. I put no pieces in place yet, but I would like to be able to be somewhere slightly warmer when it's cold and slightly colder when it's hot. These are my only real goals. Obviously, you're retired like but what do you do for insurance? Then, once you're retired? Is it Medicare?

Renee 42:35
Obama, Medicare now, Scott, which, sorry, I'm not giving a plug for Medicare. It was the hardest thing. I wish I had stayed on my husband's insurance until

Scott Benner 42:44
he had retired. Not a pleasant experience. And

Renee 42:48
so I've been on my husband's insurance. And yeah, oh, it was, it was, it's been a nightmare.

Scott Benner 42:53
Why? Dealing with them or what they cover, or what they don't,

Renee 42:57
dealing with them, and it was definitely more expensive, the supplies more expensive than staying on my husband's income. But now the continuous glucose monitor is considered durable medical so now I don't pay anything for it, so that has helped. But the pods, I used to pay $100 a quarter, and now I pay $800 a quarter.

Scott Benner 43:20
Really, wow. Medicare. Way to go. You turned your $400 insulin pumps into $2,500 insulin pumps. Thanks a lot. Is that a thing you found yourself thinking about through adulthood, like, I'm gonna retire one day I'm gonna need like, were you saving money? Like, just for this, or I don't know what your situation was. No, no, I'm sorry I will

Renee 43:42
tell you I have a great supply of diabetes

Scott Benner 43:45
supplies. You've been stuffing stuff in a closet for a while. Yes, sir. You know, I don't know anything about anything, but like I hear you Dad sells the sugar cane farm. I figure you're all just rich southern ladies now running around, but that's not the case. No, okay, you're not in big camisoles, holding umbrellas and sipping tea on the patio. No. Renee, what happened to the American dream? Your dad was not able to sell that to a giant conglomerate.

Renee 44:19
I've had a very good life. Scott, no, I imagine that's one thing I will tell you. When I was diagnosed, I remember the doctor saying, telling my dad, he said, you know, Pete Renee is very fortunate, because diabetes is an expensive disease. To have it, you have to have the knowledge on to be able to manage it, yeah, and, and she has both, so

Scott Benner 44:40
a little bit of luck along the way doesn't hurt. I mean, the expense part, I don't know what to say about that, or what to do about that. You know, like I said earlier, there are people who, you know, don't know anything about the stuff we talk about in the podcast, but some of those same people also don't have any access to insulin pumps or, you know, CGM, but if

Renee 44:59
they're on. Medicare. I mean, Medicare does have a program for low income people, yeah, so if they want to be on it, there's a way for them to I think, but I don't

Scott Benner 45:10
know, yeah, I don't disagree with you. I just think that when things are difficult to accomplish, that a lot of people will throw up their hands and stop before they get to it. So

Renee 45:18
it's a fight. Medicare has been a bite. Yeah, I mean, it's perseverance to say

Scott Benner 45:24
the least. So I want you to be able to go to the doctor and the doctor say, hey, look, you should have a CGM. You should have this insulin pump. I have insulin, and this is just going to happen. Now. You don't have to call an office or fill out a form or, like, you know, like, do a, like, jump through a bunch of hoops, like, just here, here's the CGM. So, like, we'll pay I don't know why things, I mean, I guess I do understand why, but it would be nice if things were just set up in a more automated way.

Renee 45:48
Yeah, and Scott, why? Pre authorization every year? That's ridiculous. I've hit diabetes for 41 years. It's not going to go away.

Scott Benner 45:55
Yeah, every year you have to tell somebody you have type one diabetes again, as if ridiculous. Yeah, now that that's the little stuff that I mean. Like, you think about the people who don't have the tools or the time to fight the fight, and then they don't get a CGM, and look at what it did for you, you know, like, look what that CGM did for you. It showed you a world that you didn't know existed and allowed you to completely change how you took care of yourself for the better, to the point where your doctor's telling you, like, hey, you know you're going to be around a really good long time. Everybody deserves that. Yes, you do. You know, I don't. I'm not a person who thinks everything should be free, but at the same time, like, what is there, like, 1.8 million people that have type one diabetes? Like, we can't just get them CGM. Is it that crazy? You know, everybody's got a goddamn, uh, DVR. Everybody on the on the planet's walking around with a cell phone. We can't get, like, you know, a couple million type ones, CGM or pumps or whatever they want. And if they don't want it, then fair enough. But they should have the opportunity, and it shouldn't be. It just shouldn't be a fight to

Renee 46:59
get to it. Now, I have an acquaintance who she's a little bit older than I am. She's probably 68 and she has had type one since she was a toddler. And Scott, she refuses to get on a continuous glucose monitor and a

Scott Benner 47:16
pot or a pump. Why do you think? Has she told you why? And she is, has

Renee 47:21
every complication that you can think of. And again, she's an acquaintance. I haven't I've had only brief conversations with her, but she's just not interested. She goes, this is how I've managed it my whole life. It's how I want to continue to manage it. Well, okay. Like,

Scott Benner 47:35
I don't get it. Well, yeah, but her perspective is different, like, so she thinks likely that the things that have happened to her, her complications, are what what happens? I bet you, if I talk to her, she'd say, Well, I have diabetes. So this is what happens. Because to her, this is what happens. She just didn't have the same dumb luck you had for a while. Like she didn't get the doctor who said, Hey, why don't you test after you eat and give yourself more insulin? That's probably the whole difference. Like that guy probably saved you back then, just saying that

Renee 48:04
he because he was my endocrinologist for only two years. But I guess that

Scott Benner 48:09
one statement that probably something pretty impactful, right? That's what I think. I think that one statement saved your bacon. Like, the whole way, like, because you didn't, you were bringing high blood sugars down when, when she probably wasn't. And now all these years later, she's like, look, what am I gonna do? Put this sensor on and find out this thing's all over the place. I've got these effects. They're not gonna go back. She probably thinks there's no way to, like, turn the clock back. And there probably isn't, for most of it, although there have been people on here before, older people who, you know, I think a Mike who came on and talked about, you know, his his vision was just shot, and now he He's fine. He said, All I did was find the podcast, learn how to use insulin, you know, got my blood sugar down and, you know, now my site's better, like that kind of stuff is, you know. So maybe she would get some help from it. But, well, thank

Renee 48:57
you for helping me see her perspective. Because, oops, you hear that?

Scott Benner 49:03
Oh, I didn't hear the beef, but something Did something go wrong. I'm 151 I'm a little high. Are you nervous? No, no, well, yes, so I was nervous at the beginning. Yeah, might be a little adrenaline, damn.

Renee 49:16
Was very nervous at the beginning. Now

Scott Benner 49:19
you feel okay, yeah, okay. Well, go back. Then we're ending. Now that it's almost over, I'm like, this is easy. No, but go back. You were, you were congratulating me on helping you. Go back to that.

Renee 49:30
I tend to see everything through my lens, and didn't even think about her lens. So it gives me a I'll just use the word a little bit more compassion for her,

Scott Benner 49:40
I think it's easy to think that people who aren't doing something are willfully not doing it because they don't care, or as much as I care, or they don't understand the way I understand, but everything is perspective, and I think everything is just luck, like who you intersected. I'm telling you you intersected that one Doctor Who. Who told you not to sit around and stare at high blood sugars, get up and test and give yourself insulin if you're high, I guarantee that saved you. And nobody told her that, or they told her. And she was like, ah, you know, like, That's not important. And nobody knows my friend Mike's not like, he's not running around trying to kill himself. He was working really hard at having diabetes. It was a thing he was constantly putting effort into. I never saw him ignore one time he did it. One time he almost went on strike. I don't know another way to say it. I just got a call from his mom. Hey, Mike's in the hospital, and I went and saw him. I was like, Wait, what happened? And he just told me he goes. I just, I didn't want to have diabetes, and I just, I just stopped for a few days. He just didn't take any insulin, and it obviously put him in DK, and caught up to him pretty quickly. He didn't do it again. But, you know, other than that, he was always working at it. He never went out without his kit. Always had his insulin with him, took care of himself, did what he was supposed to do, was doing everything he was being told. The problem was the things he was being told were not helpful. Maybe they were the best that the doctor had at the time. I'm not saying that otherwise, but it wasn't enough, like you got that one extra thing, that one silly thing. And like, now, I hope the podcast is doing that for other people. I hope they're hearing things that just give them another, you know, another chance or another, you know, five years of not having to worry about something down the road, or maybe there'll be a bunch of people one day or being told like, Oh my God, you're doing great. You're 66 go enjoy your retirement. And maybe one of those people will sit there and think like, I found that dumb podcast all those years ago, and it helped me being in the position I'm in, which is trying to deliver and try to imagine this like you're wherever you are right now. I'm in New Jersey. I'm just in a spare room in my house, right? And I'm trying to, like, find a way to find people, to get them to listen, to have them understand, to let them absorb, so that hopefully they'll fold some of these ideas into their day to day, so that hopefully they'll have better outcomes or an easier life. Like the pathway just to try to get somebody to listen is impossible once they listen, to get them to understand once they understand, to get them to incorporate. Like, I don't know how you're supposed to do all that. And you think back 40 years ago, you went to the doctor and what they said a couple of things to you, and it stuck to you, or it didn't, and it was valuable or it wasn't, and then you go off, and the randomness of the world, you know, writes your story for you. So I don't know, you got lucky. What was that doctor's name Weber?

Renee 52:34
Well, no, Dr Weber is my endocrinologist here, and you know, it's as you've been. And I thought, Oh, he was probably in his 60s at the time, and this was 30 years ago. Oh, okay, so no longer than that, probably 35 years ago. So, but I don't remember his name. He's the one endocrinologist that I don't remember his name. Isn't that funny?

Scott Benner 52:54
Yeah. Well, a nameless Doctor, I'm telling you, he helped you, and now you're like, you're awesome. Now he helped you. You're helping yourself. The technology is helping you. Know you're helping Scott I didn't want to say that because it sounds self serving, but obviously I'm helping Renee, thank you. Yeah, I don't know if you hear my sarcasm or not, because you're from the south, I can't tell I hear it awesome.

Renee 53:17
I hear it. I hear it on the podcast.

Scott Benner 53:19
Awesome. Yeah, you. Like the show, right? Yeah,

Renee 53:22
awesome. That's great. I really appreciate it.

Scott Benner 53:25
I appreciate that you that you found it. Hey, can you drive a tractor? I'm sorry, can you drive a tractor? I've never driven a tractor. You've never driven a tractor. You just point out there. You're like, that, man, he he makes the sugar stuff come in the house, and we're all good to have a lot of pets growing up?

Renee 53:42
Not. We had an outdoor dog and two outdoor cats to keep the mice from coming into the house.

Scott Benner 53:50
That was it. How about horse? Were there horse around? We

Renee 53:53
had chickens and cows when my grandfather was alive, but when he passed away, that was that the pasture pretty much sat empty. Gotcha,

Scott Benner 54:03
you were not that connected to the farm, other than living on it. Is that right? Right? Yeah. Okay. How about your mom? Did she care? Like, or was she busy, like, doing the things like, did you grow up in that world where your mom was cooking all the time and taking care of your father and that kind of stuff?

Renee 54:19
Yes, like every day when we got home from school, there was a fresh baked, hot out the oven snack.

Scott Benner 54:27
Every day, every day I would take that, that sounds nice,

Renee 54:33
yes. So my mom was a stay at home mother, and yes, and

Scott Benner 54:38
she's alive today. She is. How old is she? 95 Wow. Like, got her wits about her 95 or he

Renee 54:46
does. Yeah, she has arthritis, kind of head to toe, but, I mean, she's pretty sharp.

Scott Benner 54:51
No kidding, they got her loaded up on stuff. How does she deal with the pain? It's your mom, high as a kite. What's going on over there? Renee,

Renee 54:57
well, actually, I will tell you, it's funny, mom can. She thinks me having diabetes is her fault, and still, I'm like,

Scott Benner 55:05
Mom, really, yes, I'm like, Mom, it's not your fault. 41 years you're gonna go visit your mother, and she's gonna be like, I'm so sorry about what I did deal with the diabetes.

Renee 55:16
Yes, she just can't understand that it's not genetic.

Scott Benner 55:21
Oh, Renee, I'm going to tell you right now that every mom listening right now who thought one day that mom guilt they had was going to go away, they just deflated in their car. They just went, Oh, it's not going to stop ever. Sorry. Sorry, ladies, you'll be 95 blaming yourself for stuff. Go enjoy yourself. Oh, my God. Oh, the one reason I'm happy to be a boy is because I don't have that seriously, I see you ladies struggle with that is, it's terrible. Like, I watch my wife all the time. Are they okay? Is everything fine? I'm like, Kelly, they're fine. Like every day she asks me, like like, every day she asks me about my kids, as if they're two years old and we lost them at the park for an hour and a half. Are they okay? Did anybody say anything? Like, I'm like, no, they're fine. I say he went to work today, he came home. He's okay. How's Arden? She's fine. Did she say anything? Is she all right? Like, I don't that guilt. Dear God, You dodged a bullet on that one. Renee, I'm gonna tell you that right now. Also, I had an aunt Renee. She never had kids either. Think it's the name, maybe it's the name. Wow, does she spell it R, E, N, E, E, she spells it exactly like yours. Okay, good, good. You're like, there the way it should be, damn it.

Renee 56:42
Spell it, that's right. R, E, N, E is masculine.

Scott Benner 56:46
Spell it, right. I'm gonna let you go in a second. But what made you want to do this?

Renee 56:50
There was a stretch where I was listening and everybody was so doom and gloom about having diabetes, and I just wanted, I just want to share my story with you, but again, I feel like it's a disease that we can manage, and there are so many that you can't. And so I just wanted to encourage other people who have the disease to take care of themselves the best that they can, so that they can have a long, full life.

Scott Benner 57:17
So just get out there and keep trying and get good information and do your best to apply it and keep going, yes, yeah, oh, it's lovely. I'm glad you did that. Thank you. I hope you appreciate that. I didn't ask you any of the questions I had about lobbying for sugar, because I had real serious questions about it, but it didn't seem like a thing you would want to share. So I didn't ask you, but I would be super interested

Renee 57:40
sometime. We can take that off record if you want. Excellent. All right, hold on one second for me. Thank you.

Scott Benner 57:52
Thanks for tuning in today, and thanks to Medtronic diabetes for sponsoring this episode. We've been talking about Medtronic mini med 780 G system today, an automated insulin delivery system that helps make diabetes management easier day and night, whether it's their meal detection technology or the Medtronic extended infusion set, it all comes together to simplify life with diabetes. Go find out more at my link, Medtronic diabetes.com/juicebox having an easy to use and accurate blood glucose meter is just one click away. Contour next.com/juicebox That's right. Today's episode is sponsored by the contour next gen blood glucose meter. It was sponsored by the twist a ID system powered by tide pool, if you want a commercially available insulin pump with twist loop that offers unmatched personalization and precision or peace of mind, you want twist, twist.com/juicebox,

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#1590 Seventeen Year Old Type 1 Using a GLP

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio -  Radio Public, Amazon Alexa or wherever they get audio.

Returning guest from 1136, she talks about her now 17-year-old daughter’s success with a GLP—better weight, insulin resistance, and mental health—and how she’s experiencing similar benefits.

+ Click for EPISODE TRANSCRIPT

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends and welcome back to another episode of The Juicebox podcast.

About a year and a half ago in Episode 1136 an anonymous mother came on to talk about her 15 year old type one's use of GLP and how her child's insulin needs drop drastically. That episode was called 15 year old type one using a GLP. Well, that 15 year old is 17 now, and we're going to get an update. Insulin needs are still incredibly interesting. If this is your first time listening to the Juicebox podcast and you'd like to hear more, download Apple podcast or Spotify, really, any audio app at all, look for the Juicebox podcast and follow or subscribe. We put out new content every day that you'll enjoy. Want to learn more about your diabetes management, go to Juicebox podcast.com. Up in the menu and look for bold Beginnings The Diabetes Pro Tip series and much more. This podcast is full of collections and series of information that will help you to live better with insulin. Nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan. The episode you're about to listen to is sponsored by tandem Moby, the impressively small insulin pump. Tandem Moby features tandems newest algorithm control, iq plus technology. It's designed for greater discretion, more freedom and improved time and range. Learn more and get started today at tandem diabetes.com/juicebox today's podcast is sponsored by us Med, US med.com/juicebox you can get your diabetes supplies from the same place that we do, and I'm talking about Dexcom, libre, Omnipod, tandem, and so much more us, med.com/juicebox, or call 888-721-1514, so anonymous, you and I were just talking before we started recording, and we did not make up a fake name for you last time. So you're just Hello. I'll just use Hi instead of names. Hello, yeah, see that works perfectly. It does now the episode you were on previously. Do you know the number of it by any chance?

Speaker 1 2:31
11? I want to say 1136 maybe check that to be so I could verify real quick,

Scott Benner 2:39
1136 you think? I think so. My God, I make too many. I was gonna say I make a lot of podcasts. 1136 15 year old, type one, using a GLP. That's correct. Okay, so I first think, if you're gonna listen to this and you haven't heard that, you're making a mistake, you should go hear that. Yes, let's just give people like a very short, few minute overview that fast forwards right through that first hour and a half that we talked so your daughter was diagnosed with type one. What? Age 1313, and in two years since then, she was gaining weight, is that right? She

Anonymous Female Speaker 3:22
was gaining weight and using a whole lot more insulin than I thought she should be needing.

Scott Benner 3:28
Meaning, and if I recall up to 70 units a day,

Anonymous Female Speaker 3:32
45 to 50 ish a day at the most.

Scott Benner 3:36
So 13 year old, 14 year old, 15 year old, using that much insulin, because people are going to ask over and over again. She had testing and has markers for type one diabetes

Anonymous Female Speaker 3:48
Correct. She had testing, had tested positive for two antibodies, but also was still supposedly honeymooning, because her C peptide was still in the normal range. So for a kiddo still honeymooning, needing 4550 units a day in my brain just didn't compute. Okay, you

Scott Benner 4:05
know. And, and for more background, you had used the GLP for what

Anonymous Female Speaker 4:10
I had used the GLP for PCOS,

Scott Benner 4:13
okay? And it was valuable for you in that regard,

Anonymous Female Speaker 4:16
absolutely, 100% I'm still on it to this day. That is one medication that I will fight to the death for to never have to give it

Scott Benner 4:24
up. There's nothing I wouldn't do to keep my GLP medication because of all the things that I've seen it do for me, but like, tell me for you, what do you feel like it did for you?

Anonymous Female Speaker 4:36
I mean, for me personally, it resolved all of my bloating. It resolved all of my achiness. I was finally able to lose weight. You know, I had been on the cleanest of clean diets, right? Chicken and green beans three times a day, basically, and was still packing on the weight. And so it has. It's just reversed all of that for me, yeah, and I don't have the the bloating and the tummy issues anymore. I can eat. Be not just chicken and green beans, and I have finally lost about 30 pounds, which has been fantastic, and I just feel good. You know, I don't hurt all the time. I just feel good. I'm much, much happier person.

Scott Benner 5:12
I have to tell you that it's a great explanation for how I feel too, like it really is. It's what I did for me. But more importantly, it did it for you. You looked at your daughter and thought, Is it possible she's having some of this that I'm having? Is that right?

Anonymous Female Speaker 5:26
Right? Well, and it just was, you know, she lost a lot of weight prior to diagnosis, we were trying to help get her healthy. We focus on being healthy. We don't focus on numbers. We are trying to get healthy because, because we weren't when she got diagnosed, and we started the insulin regimen and everything, all of that weight, and then some came back very quickly, and I just wanted her to be healthy. And once one of the glps got approval for use in her age group, I approached her endocrinologist about it, and and our endocrinologist was like, Absolutely, let's try it. Let's see how it goes. And started her on it, and I saw so many benefits that were not expected. That has just been that, I don't want to toss the word miracle around lightly, but has been a miracle medication for her in so many ways. She's happy, healthy. She's down 30 pounds, you know, right at her perfect weight, and has kind of stabilized there for a good while now. And it has just been amazing for her.

Scott Benner 6:31
Go over the things you think it helped her with.

Anonymous Female Speaker 6:32
Well, I mean, it definitely helped her with the weight loss, and it helped her insulin resistance, right? Like, I mean, if you go back and listen to the first episode, it was just matter of days that she started needing less insulin. And that's been the biggest impact for her, is, you know, she'll tell you every day of the week she feels like she's not even diabetic anymore, because she doesn't have to think about blood sugar, she doesn't have to think about carbs, she doesn't have to think about pre bolusing. So that's been obviously the biggest impact for her in that

Scott Benner 7:03
way. Did you also believe, if I remember correctly, that she might have PCOS, too?

Anonymous Female Speaker 7:08
I did, and I still do. She is not, you know, with the hormonal testing and everything, she's not testing as PCOS, but I think that's because of this medication. I think this medication is also helping kind of regulate some things for her in that realm as well. Okay,

Scott Benner 7:23
so I think that catches us up now. Episode 1136 went up in February of 2024 it's June now. So it's almost been a year, and maybe almost, you know, get up on a year and a half since you were on the last time. Since then, you will text me periodically graphs or insulin changes, or something like that. So in the last year and change have her insulin needs continued to decrease.

Anonymous Female Speaker 7:50
Her insulin needs did continue to decrease. I was trying to remember, I feel like, towards the time that we recorded the episode, she was on about nine units of basal a day and and no carb coverage, right? No fast acting. Insulin. She's gone down as low as one unit of basal and no fast acting. She's currently at four units of basal and limited fast acting. You know, we just kind of take it day by day. You start to, kind of watch, watch the trends, and see and and sometimes you can see that her body is just getting tired and needs a little bit of help. And so there may be some times where she needs a unit, you know, of fast acting here and there to help out. It's not pre bolusing, it's not counting carbs. It's not, oh, we're going to eat. We need to do insulin. It's it's more reactionary than being proactive for her, because it's not reliable that she's gonna need it.

Scott Benner 8:46
You can't predict what's gonna happen, right? Yeah, but so she goes from a diagnosis to upwards of 50 units of insulin a day, to using a GLP to getting down to nine units of basal a day, to getting down to four units of basal a day, to getting down to one unit of basal a day, and you're not covering meals. Now, what happens when you don't cover a meal? Like people like, oh, but she probably spikes like, what happens at a meal?

Anonymous Female Speaker 9:13
It depends on the meal, right? Because we, we know not, not all carbs are equal. If it's kind of our normal meal, which we tend to do, high protein and maybe moderate carb, she may spike up until like the 150s 160s but comes right back down. If it's a really carb heavy meal, she might hit 180 but again, it's right back down. It's a quick up and a quick down. If we do too many carb heavy things too close together, she might need a little bit of assistance, because she might get stuck in like the 130s 140s

Scott Benner 9:49
but still, that still, I mean assistance from 140 if you stack up too many carb heavy meals, right? This has been a while now, like, have you wrapped your mind? Around what you think is happening?

Anonymous Female Speaker 10:01
I mean, from the very beginning, I felt like what's happening is it's helping preserve the beta cell function that she still had, because she was still testing her C peptide in the normal range, right? And so, like by the labs, she was still honeymooning even two years in when we started the GLP. And even still, at that point, when we started the GLP, her C peptide was like point eight, which was like the lowest end of normal, her most recent C peptide, because we do labs once a year with with our endo and so her most recent labs were in February of this year, and her C peptide was 1.2 and so her C peptide has gone up a little bit. You know, I wouldn't say significantly, but it's gone up a little bit. And to me, that just confirms my hypothesis that this GLP is just helping preserve the beta cell function that she still had remaining.

Scott Benner 10:55
Do you think she's like Lada, but also insulin resistant, like do you think if she didn't have type one, you'd think of her as, like, insulin resistant type two? Absolutely, absolutely. Okay, I do. So she kind of has these two things happening at the same time,

Anonymous Female Speaker 11:11
because, based on the labs, right, honeymooning, she shouldn't have been needing the kind of insulin that she was needing, pre GLP, yeah. And knowing my history, you know, with PCOS, which is insulin resistance. You know, those two go hand in hand, right? I feel 100% that she had some insulin resistance

Scott Benner 11:30
happening. She have any other autoimmune issues. She does

Anonymous Female Speaker 11:33
not yet have any autoimmune issues.

Scott Benner 11:38
People say yet all the time when I ask, they're like, No, not yet,

Anonymous Female Speaker 11:41
not yet, no. Her thyroids testing good. She's not shown any trending, like positive source, celiac or anything like that. So, right, so knock on wood, you know, other than the PCOS, which, again, by the labs, she's not testing positive for PCOS. I think the GOP is helping us there as well.

Scott Benner 11:59
So, is it crazy to think that without the insulin resistance, she'd just be in a very slow onset of type one that you might not even notice? Possibly, possibly. Yeah, it's not as common for me to hear stories of kids with, like, long, lot of presentations, but I do hear it more from from adults, but it does feel like that, like, if you just kind of set the insulin resistance aside for a second because, because basically the GLP squashed that right if her blood sugars were constantly 110 and she had spikes into 140s or 150s sometimes with meals that came back down on their own. Like you wouldn't know that in a otherwise healthy person, correct, unless you ran an A 1c

Anonymous Female Speaker 12:45
right? Yeah. And even then the A 1c wouldn't be high. You know, with those numbers, she she might test as, like, pre diabetic, maybe, yeah, if it had been going on long enough. But

Scott Benner 12:57
Okay, so while I wrap my head around all that, like, switch gears for a second and tell me she's diagnosed type one. She's living full on using 50 units of insulin a day. This GLP comes into our world that she's going the other way, but at some point you imagine this is going to end right, like this. GLP, yeah, this. GLP is not going to do this. You

Anonymous Female Speaker 13:18
just keep waiting for the other shoe to drop, right? And even now, you know, she was down to just one unit of basal, and in very little fast acting, you know, just here and there. And the fact that we've gone back up to four units of basal, I'm like, are we, you know, approaching the end of this? Yeah. And I don't think we are, because, you know, she is so steady and stable with the four units of basal and very minimal, um, fast acting, right? And so, and she had to go up on the basal when she got a really bad cold. I think her body just was tired and needed a little extra help. And so, is it possible that she goes back down to, you know, one or two units? Maybe, I don't know. We'll have to, we'll have to wait and see, but that's always in the back of my head. It's like, anytime that we need to do some fast acting, or anytime that we need to increase our basal I'm like, is this ending or is this just, you know, a wave that we're riding at the moment?

Scott Benner 14:14
So setting aside just the medical anomaly of all this and how interesting it is, like, how do you think she handles that like psychologically. Do you think she's just happy for the time, or do you think that when it goes the other way, is she gonna feel a loss again? I have always disliked ordering diabetes supplies. I'm guessing you have as well. It hasn't been a problem for us for the last few years, though, because we began using us Med, you can too us med.com/juicebox, or call 888-721-1514, to get your free benefits. Check us med has served over 1 million people living with diabetes since 1996 they carry everything you need from CGM. To insulin pumps and diabetes testing supplies and more. I'm talking about all the good ones, all your favorites. Libre three, Dexcom, g7 and pumps like Omnipod five, Omnipod dash tandem, and most recently, the eyelet pump from beta bionics, the stuff you're looking for, they have it at us. Med, 888-721-1514, or go to us, med, comm slash juice box to get started now use my link to support the podcast. That's us, med.com/juice box. Or call 888-721-1514, this episode is sponsored by tandem Diabetes Care, and today I'm going to tell you about tandems, newest pump and algorithm, the tandem mobi system with control iq plus technology features auto Bolus, which can cover missed meal boluses and help prevent hyperglycemia. It has a dedicated sleep activity setting and is controlled from your personal iPhone. Tandem will help you to check your benefits today through my link, tandem diabetes.com/juicebox, this is going to help you to get started with tandem, smallest pump yet that's powered by its best algorithm ever control IQ. Plus technology helps to keep blood sugars in range by predicting glucose levels 30 minutes ahead, and it adjusts insulin accordingly. You can wear the tandem Moby in a number of ways. Wear it on body with a patch like adhesive sleeve that is sold separately. Clip it discreetly to your clothing or slip it into your pocket head. Now to my link, tandem diabetes.com/juicebox, to check out your benefits and get started today.

Anonymous Female Speaker 16:39
That's a great question. I haven't really like talked to her about that. I know she's definitely happy right now. Sure, it's made life a whole lot easier. You know, we've had some monumental life things happen during this time frame. She's gotten her driver's license right and started driving a car and going off with friends, and a year from now, she's going to college, and she hasn't had to struggle with the driving piece, right? We haven't had to worry about blood sugar with driving. That just hasn't been a problem. She doesn't go low, but maybe once a month, you know, yeah, and she doesn't go high. So, like, that's been really nice for her, and nice for me. I don't have to worry quite so much pre GLP, you know, she really was like, I don't want to go away to college. I want to go to college here so I can stay home and you can help me my diabetes and everything. And now she's looking at a college that's almost four hours away. So, like, it's, it's definitely changed things in her world. So I do imagine, you know, if the other shoe drops, and we have to, you know, start counting carbs and all of that again. I think there probably will be a sadness there, but I also feel like she'll be well equipped to handle it when the time comes. If the time

Scott Benner 17:53
comes, I'm glad because, I mean, it just occurs to me that like being diagnosed once is crazy enough, right? Yeah, twice. Hey, you have type one diabetes. Actually, you know what? If you can just take this injection once a week. Most of the problems that come with this should go away. And then you're like, now, you're telling a 13 to 14 to 15 year old like a person in that age. And how old is she now? She's 1717. Now, wow, she's 17. So it's been going on a good long time where she's had this relief. There's got to be a part of her that just thinks, I bet you it'll stay like this forever.

Anonymous Female Speaker 18:21
Yeah, well, and it's, I mean, so she stopped having to Bolus for food in December of 2023, and so that was just two and a half years post diagnosis for her. So we've been not bolusing for food almost as long as she had to Bolus for food, yeah. And so it really is kind of a distant memory. And she, she says sometimes, you know, I don't even remember what it was like to have to, like, figure out how many carbs were on my plate and figure out how much insulin to take, and then have to wait to eat. Yeah, it is going to be like a brand new thing if and when that happens. Yeah,

Scott Benner 19:02
I don't want to think about you like a social experiment, but it is going to be really interesting, absolutely. Like, it will be. I am million percent hope that one day she wants to come on and talk about it because, and I wouldn't pressure, obviously, but like, if she ever had that feeling, I'd love to know, like, all this, this stuff here, I think it's, it's super interesting. I'm looking through your old text messages to me, like, messages to me, like clarity reports that look like, I mean, just look like they're from somebody who doesn't have diabetes. Yeah, you

Anonymous Female Speaker 19:29
know, yeah, it's crazy. Like, I just, you know, in prep for today's call, I pulled her her clarity report and her 90 day average glucose is 114, with the standard deviation of 23, 98% in range. That's

Scott Benner 19:43
it. With a you're using a unit of basal right now, well, anywhere

Anonymous Female Speaker 19:47
from one to four, you know, during that timeframe, okay? And, and that's coming off of, you know, we just went on vacation last week. And in all bets are off on vacation right? Especially when it's all inclusive, and you. Can eat whatever you want, whenever you want. And so we did have to throw a fair amount of fast acting during vacation just to kind of help regulate things a little bit. But by fair amount of fast acting, I mean, maybe, like, three units a day, in one unit increments, here and there,

Scott Benner 20:14
because they spread out over the day too.

Anonymous Female Speaker 20:15
Yeah, yeah. Because, you know, one unit depending on where her blood sugar is. And that's the thing, like, I'm in my brain always trying to calculate, like, what her correction factor would be, or her carb ratio would be. And it can't, because it just varies so much. You know, one unit might drop her 31, unit might drop her 80. It just kind of depends on how long she's been stuck, where she's at, what we have happening, you know, activity, all of that sort of thing. Is she sleeping or is it daytime, right? So toss in one unit even, is kind of scary. Sometimes.

Scott Benner 20:46
Did you ever consider trying a Pres? So because

Anonymous Female Speaker 20:51
she's a minor, Pres is not recommended for

Scott Benner 20:55
her, I see, okay, but that would really be valuable for her, though, right?

Anonymous Female Speaker 20:59
I think it would be, you know, and I, I'm, I'm counting down the days, you know, until that 18th birthday. For lots of reasons, you know, I think it might benefit her to transition to, potentially, a different GLP, would love to try a Fraser would love to try ever since, you know, instead of having to do a new Dexcom every 10 days, you know, lots of things open up when she turns 18. So

Scott Benner 21:20
what GLP, she have now, is it we go V, she's on we go V. You prefer to trynjaro,

Anonymous Female Speaker 21:26
Manjaro, or is that bound? I just I, I'm just curious to see what a different one would do, right? Like has, has her body gotten used to this one, because we did try to cut back. So she's on the maximum dose as maintenance, but she was starting to kind of have some bowel issues, and so we backed off to the next dose down, and I noticed a dramatic difference in her insulin needs and her hunger, you know, all the things we only lasted about three weeks on the lower dose before she went back up again. And thankfully, she's not had any more, you know, tummy issues. And so I think it was, is not related, but we just weren't totally sure. So I would just be curious to see, you know, if a different formulation would change anything. The

Scott Benner 22:14
one thing about the step down is it has the G, I P in it as well, and you're not really looking to curb her hunger that much, right?

Anonymous Female Speaker 22:21
Correct? No, I'm happy where that's at right now. And she's, she's not losing weight anymore, so she's plateaued, and been plateaued for, you know, probably six months or so now, but at a at a healthy weight, right? Like I'm, I'm not concerned about that anymore, but I'm just curious, you know, because I know sometimes bodies get used to medication over time, and so I'm just curious if switching to a different formulation might

Scott Benner 22:47
just make change something. Change something. I don't know what I would

Anonymous Female Speaker 22:50
be looking for it to change. Like, would it bring us back down to that one unit a day? Or would it, you know, possibly eliminate the need for basal altogether? I don't know. Like, I just

Scott Benner 22:59
just a science experiment that you're interested in finding out more about. Yeah, and

Anonymous Female Speaker 23:03
she'll, she'll tell everybody. She jokes with it all the time. Of you know, she says, I'm just a walking science experiment, but she's cool with it. She, she just throws in every now and then, just, don't let me die mom. Yeah, no pressure. But I would be curious to see what a different GLP, yeah, might do. But we've, we've got about a year until we can look at

Scott Benner 23:22
that. So before the GLP, did she have a voracious appetite that you thought was, oh my

Anonymous Female Speaker 23:26
goodness. And even with the GOP, she can eat, okay, it has, it has curbed her appetite, but she still has a very healthy appetite.

Scott Benner 23:36
Okay, there's part of me that sometimes wants Arden to go back to ozempic Because she's using Manjaro. And the truth is, is that I don't think she really needs the appetite curbing as much as it does that like we have other issues, like Arden's not great with injections. So in my heart, what I'd like to see is, I'd like to see Arden take a significant lower amount every five days, instead of the amount she takes every seven days. And

Anonymous Female Speaker 24:05
I do notice it Wayne on days five and six. So I would love to be able to split dose, yeah, as well. Just can't do that with the WeGO

Scott Benner 24:13
V. We go V is in a is it in a self injector? Correct? Listen, yeah. We inject it into a vial and then draw it out with an insulin

Anonymous Female Speaker 24:22
I've thought about that, and I may broach that at our next indo visit, and just see, see what she thinks for

Scott Benner 24:29
Arden, like she doesn't need the appetite curbing to the degree that it happens to her, like there must be an amount of this drug that she could take that would hold her insulin resistance at bay, help her with like, PCOS, stuff like that, inflammation, all the other things I see it doing for and without it stopping her, like, sometimes she's just like, I'm not hungry, yeah. And then she's forcing herself, you know, and she's eating when she's not hungry, which is not great either. You know, it would be nice if there was, I guess what I'm saying is, is that I think there's a pre. Described amount that these drugs are like FDA tested for. So everybody gets a self injector at a certain number. But I think the truth is, is that if we had a more individualized way to measure your needs, it would almost be like insulin, right where you could say, like, yeah. I mean, I know the the norm is this, but for me, it's a little more like this, little less, you know, right here,

Anonymous Female Speaker 25:22
let's see. And I don't think we need less. I think we need more, because she's on that maximum FDA approved dose right by day like five, she could eat everything, you know, days days one and two, she has less of an appetite. Days like three, four and five, her appetite is what I would consider normal, and then for the last two days, she's like, give me everything. Feed me all of the food, you know. And so, like, I would love to keep the same dose, but do it every five days instead of every seven.

Scott Benner 25:53
It took me a while to figure out that I was getting a pizza on day seven. I don't know. I'm a boy. I don't really pay that closer attention. I think it's happening. I would be like, Huh? Am I getting a pizza like, every week? Like, that's weird. And then I stopped and looked at it. I'm like, Oh, I'm getting hungrier day six and seven.

Anonymous Female Speaker 26:12
Yeah, yeah. And I notice it in her blood sugar numbers too. That's what I'm thinking. There's a direct correlation, like, she's much more stable on the front end of the week than she is on the back end of the week.

Scott Benner 26:25
Yeah, it's interesting, because there's part of me that thinks, if they have the luck with the oral medication that they're working on now, like, that kind of fixes that problem in totality, right, right? They can make it work. I mean, going back, there's been GLP pills in the past, the rebels, us, trulicity, like, stuff like that. They never really worked nearly as well as the injectables like Wego V and Manjaro work. It's clear to anybody who uses Wego V Manjaro, is that bound all that stuff like, you know, there's a waning at the end, yeah. So if you could put it in more frequently? Could it be less, you know, or would it need to be, you know, a larger amount more frequently to cover that? And if they're going to have luck making these oral medications that are as, oh, if aggressive is the right word, but as successful as these new injectable glps are, then maybe that just goes away completely, and you just take a pill once a day,

Anonymous Female Speaker 27:22
right? Well, and that's also where I'm kind of interested, you know, with the Z bound, get go higher dosages than what the we go, V goes. And so I'm curious if even just going up to that next number, you know, solves, solves the issue. Yeah.

Scott Benner 27:37
So what's the level of we go, V that she's on. Now, what is it? She's on the 2.4 and that's the largest one. That's the largest one. Okay, and then, but they, the way it's measured is different, though, like, because I'm on like, 12 and a half of Z bound. So let me I think there's also a 15, which I don't feel like I need. I actually, this morning, I think I was my lowest weight ever this morning. That's exciting, yeah. But surprised me a little though, because I kind of had gotten back into that idea of like, oh, this is going to be my window right here. I'm going to be between 176 and 173 like, that's what I just thought my window was going to be. And I was like, Okay, I guess that. I mean, it's fine, like, if that's what it is. And then this morning, I was like, I'm 172 like, I don't think I've ever been 172 so now I'm wondering what's gonna happen, and if this process that you know is now been two years for me, like, is it? Will I look back on it in five years and see that it was more like a three year process, and I didn't realize it, or, like, I don't know, like, it's all kind of fascinating, right? Sorry, what you're looking back at, what?

Anonymous Female Speaker 28:48
Well, I was trying to look at the wegovy dosages to see, because I know that they the dosages are in, I think milligrams, but that bound is in something different. I think I don't know. Yeah, I don't know. It's so confusing. Why they can't all just use the same numbers. We don't want to make

Scott Benner 29:07
anything too easy.

Unknown Speaker 29:08
I know I am

Scott Benner 29:10
looking at a graph you sent me a few months ago. It's a six hour graph where the stability exists overnight right around 90 or 100 and then at 9am maybe 8:30am there's a spike that goes to 180 and then it's back down to 90 by 1030 like so from like 830 it starts. And to call it a spike is wrong. It's a rise to 180 that takes an hour, and then the fall from 180 back to 90 again is maybe an hour and a half. So like it's a window of about two and a half hours. But in that two and a half hours, your text says two bowls of Fruit Loops and a banana.

Anonymous Female Speaker 29:58
Yeah, I was so I was. To ask you if you had the details on what she

Scott Benner 30:01
no eaten. Yeah, she ate two bowls of Fruit Loops. I'm gonna guess that the serving size, it wasn't one cup in one cup and a banana, crazy sugar, and in a two and a half hour period, never went over 180 and was right back to 90 again. Yeah, it's insane, like it feels insane, you know? And she does see impacts, or insulin impacts around, like periods too, right?

Anonymous Female Speaker 30:26
She does. And it's that's when we're more likely to see a little bit more need for some help from some fast acting. Not that she goes high, but she just gets stuck, you know? She might get stuck in the 150s she has her high alarm set at 150 and so when her high alarm goes off, especially during the night at 150 she'll toss a unit at it to help get it back down. But that's typically only a couple of days around her period. Yeah.

Scott Benner 30:55
How long ago does she take her pump off?

Unknown Speaker 30:58
December of 2323

Scott Benner 31:02
it was just like, Wait, this is a waste of time for us.

Anonymous Female Speaker 31:05
Well, when we stopped needing to Bolus for food, she was like, Can I just go MDI? And I was like, I guess I totally didn't think it would last, like, I thought she would get tired of the injections, because she wasn't a fan of them in the first place, right? And so I was like, Okay, fine, whatever. Go off. Because we were using DIY loop with Dash, I figured it would last a couple weeks. So I was like, okay, we can do a couple weeks of it. It'll be awful, and she'll want to go back to the pump. Yeah. Here we are, year and a half later, and I asked her very often, you ready to go back on the pod yet? Nope. I'm happy. I'm like, Well, you want to go on? You know? Moby, nope. I'm happy because in my brain, if we could micro dose would make it so much easier to, like, have even better stability, right? But she's not interested. And I really can't complain. I mean, her last a 1c was 5.3 Yeah, in February. So, like, I really don't feel like I have a leg to stand on to push the issue with her, and she's taken over 100% of her management recently, and so, like, I'm trying to to be more hands off as we're approaching the, you know, adulthood and moving away to college, I want to make sure that she knows what she's doing. Now, we still have conversations about diabetes management, but it's because she's thinking she needs to change something, and she just wants to talk through it first, right? Which I love, because that lets me know, you know, whether she's thinking through things correctly, you know, in the right way, and making the right adjustments, but she's she's done really well with it, yeah, so I feel like I can't push going back on the pump. I feel like it would make life a whole lot easier, but I mean, life is not hard any stretch of the imagination compared to what it was two years ago. Listen, this, though

Scott Benner 32:46
this GLP is ruined. What a great type a diabetes mom you could have been

Anonymous Female Speaker 32:51
I, you know? I mean, we had a 4.9 on on the pod. So it's like, it's really hard for me to let go of that I was so good at it. I'm a numbers person. I had spreadsheets, you know, and now it's like, I was prepping for today's call, and I'm like, I've done really a crap job of keeping track of, like, when we've changed dosages and stuff over the last two years, like, I've written nothing down. I have no charts, I have no spreadsheets. Like, there's nothing to keep track of. There's nothing to keep track of, you know. And I catch myself every now and then complaining about, you know, today's been a hard Diabetes Day, and I'm like, But you know what? My alarms haven't gone off at all. I have slept through the night, you know, 98% of the nights in the last year and a half. I really can't complain, but but that's just, you know, I strive for for perfection, which is impossible with diabetes.

Scott Benner 33:45
I ask you a question pretty frequently, and I feel like it's a little uncomfortable because of what happened. But you are anonymous, so if you're not comfortable talking about this, just stop me. It's fine. But every time I think about this, I think is no one looking into this, like, why isn't, why hasn't the government stolen your child put it in a box, and are there testing her? Why are we not trying to figure out, like, what is happening right here? And by the way, I'm not saying you should, you know, anybody should give themselves over to, you know, anything they're not interested in, but, like, something really unique is happening, yeah?

Anonymous Female Speaker 34:19
Yeah. I mean, I've reached out, you know, just to kind of be like, you know, hey, this is our story, you know, this is how great things have been. I've encouraged, you know, our indo to do the same, and I'm not fully, you know, in the loop on, on what her thought process is, on what she has or has not decided to do, you know, I kind of, I leave that at that level, right? Because I feel like me as just a mom of a type one, I don't feel like I have clout, you know, like, who's gonna listen to me, right? But I do feel like, you know, we're hearing more about it. There are more people because, like, when we. We started this process a year and a half ago, or whenever it was August of 23 I didn't know anybody else who was doing this right, or was experiencing what we were experiencing. And I feel like now, like even just on the Juicebox page, on Facebook, right, I'm I'm hearing more and more stories, and so in my brain, I feel like there's more kind of chatter going on. And I my gut, just tells me that companies are looking into it. We just don't hear about it yet. I feel very strongly that that there is, you know, is interest in research being done, that it just is not published yet.

Scott Benner 35:37
I feel like when I'm looking at people telling their stories online, and even the ones that come on the podcast and talk about it, I feel like what I'm seeing is that if you have insulin resistance, like, not just type one diabetes, because I see people say, like, hey, look, I have type one. I took a GLP. I didn't need to lose weight. And guess what, I used the same amount of insulin as I always used. I think, like, Okay, well, it's not lowering blood sugar or it's it's lowering insulin resistance, but not insulin resistance the way you're thinking about it when you have type one, but insulin resistance the way you should be thinking about it if you're of type two or other kind of metabolic issues like so I feel like what's happening is we're finding people who happen to have type one but also have those other issues, and you can almost split them down the middle, like two different people. It's helping you on the one side of your issue,

Anonymous Female Speaker 36:27
right? It's not getting rid of the type one, right? You have the antibodies positive for them. There's not a blessed thing that you can do about that yet. But I feel like that's almost where the attention needs to go is. Is not necessarily focusing on these glps, but focusing on the fact that it is possible to be type one and have insulin resistance the same time. Because I feel like that is just a knowledge point that is missed. Yeah, so often, like, I feel like folks think about it, is okay, your type two. That's why these medications can help you. But type ones don't have that. And that is absolutely false.

Scott Benner 37:07
The reason you're anonymous is because there's a certain group of people are going to be like, glps, don't help. Type ones, you're an idiot. Like, okay, great, awesome, thanks. That's not what we're saying. Like, hear the whole thing, right? Even. Like, dr, you must have loved Dr, handy. Oh my goodness,

Anonymous Female Speaker 37:21
yes. Like, I was so excited to hear, you know, someone educated and in a position to be able to have influence.

Scott Benner 37:29
It was when I spoke with him, I thought, Oh, this is how this all works. Like a group of people who know what they're talking about, don't listen to nud mix, they just make decisions and then put stuff in play, and then that's how the rest of them decide on treatments afterwards. I'm like, Oh, that's so interesting. Because otherwise you get caught up in anything from, like, you know, YouTubers trying to make clicks on yelling about, like, you're lazy. That's why you're using this, like, all that crap that down to, like, they're giving it the type ones. Now it's dangerous, you know, like, that's not what it's for. Like, just, you know, making an argument off the label or whatever. But, yeah, I mean, that's been my point the whole way, is that there's something happening. It's not happening for everybody. But, you know, if we're gonna sit here, I just listen, I just recorded with somebody, and I said to them, it can't be coincidental that, like, I think the way I put it was, if I did a podcast that wasn't about type one diabetes, I don't think I'd hear from so many people with anxiety. And I think anxiety has something to do with inflammation. I think because you have an autoimmune issue, you have more inflammation. Like these things all kind of like, they coalesce together, they touching each other to some degree or another. We're not good medically, yet, we don't have the expertise to just, like, turn down inflammation, right? So when you see something that does that, I mean, like, you're a great example. Like, you're a person who's eating healthy and you're still gaining weight, and you still have trouble with your, you know, your lady processes, etc, and you put this GLP in, and then poof, all gone nice and fixed, like what happened there? I don't think the understood explanations of what happened there have caught up to what's actually happening, right? You know what

Anonymous Female Speaker 39:12
the medication was intended for and tested for? Right? Right? Is the weight loss aspect of it, and and so all of the rest of this is what I call happy accidents, right? It was not what they were intending to fix or address. It's side effects that just happened to be good ones instead of bad ones. And so now the research has to catch up with that and answer the why. Like, okay, we see this happening, but we need to understand why it's happening so that we can make the right recommendations with the medication moving forward.

Scott Benner 39:46
And my worry is that there won't be enough money in that, or somebody won't see the financial pathway to it, so they'll just ignore it, and they'll just be like, Oh, for the people at Lucky helps, it'll help them luckily. But like, what about the lady who came on and said that? That her bipolar kid had a reduction in a lot of bipolar symptoms on a GLP, you know, if you're going to be reactionary, you go, glps, don't stop bipolar disorder. No one said that. What I'm thinking is is bipolar somehow connected to inflammation, inflammation, right? And then this kid's inflammation went down, and then some of the problems they were having lessened, right? And like, no one's gonna study that you don't mean. And then that makes me sad,

Anonymous Female Speaker 40:26
yeah, because there's so much potential, so much potential to help so many people. I have friends that work in the mental health care industry, and what they've seen as a result of these medications is incredible. That is an area that I feel like we are so far behind the eight ball in research and treatment. And it's, it's a pandemic that's plaguing our people, you know, and it makes me sad when I see something that has the potential to help, but nobody's looking at it through that lens.

Scott Benner 40:58
Yeah, that's my concern too. It's just that. I mean, we tapped into something here, just the benefits that I've seen personally for myself, right? And the one and the ones that you've seen for yourself personally, like, how often is there a medication that will help a female and a male the same medication when it's about like, you have a lessening of PCOS symptoms, I now absorb my iron,

Anonymous Female Speaker 41:23
right? Well, that too for me, you know, because I was anemic and had iron infusions and whatever, and I've not had any like, all my numbers are beautiful, yeah, I just feel good for the first time in I want to say, my life, you know, a lot of these autoimmune things that happened such at an early age that I feel like, you know, now I'm 45 and I finally know what it's like to feel good, right? Like, it stinks that it took this long to get there, but I'm happy I'm there, you know, making the most of it.

Scott Benner 41:53
Yeah, two thoughts, like, I just told my son the other day, I was like, I don't remember the last time I back hurt, and I'm sitting in a chair that you guys bought for me. Like, I don't know if this might be like an old like podcast lore at this point, but one, my back hurts so much.

Anonymous Female Speaker 42:08
Yeah, no, I remember you asking people for suggestions. Somebody suggested

Scott Benner 42:12
chair for me like that might help me. I'm in this chair all the time. My back is killing me, which turned into, like, a lot of lovely people throwing five and $10 into like, a GoFundMe or something like that. Before I knew it, I had 1000s of dollars, and I was like, begging people to stop. I'm like, oh my god, stop. So I'm sitting in an awesome chair. It's steel case, in case you're wondering, it's really great. I still really appreciate the chair. I don't need it anymore. My back does not hurt anymore, and it's not because of the chair, right? The Chair helped, but it's the GLP, and you're like, Oh, yeah. Well, you lost weight, Scott, I don't think it's that my back stopped hurting before I lost the weight, you know, like, I don't think it doesn't not help having less weight, like, joint on my joints, on my body. But I'm gonna tell you is, like, I was six months into glps, and I was like, My back doesn't hurt anymore, right? How come I don't have plantar fasciitis anymore? And some people say, well, it's just the weight. I'm like, I don't know, is it just the weight?

Anonymous Female Speaker 43:04
I mean, it's so many things. It's the weight combined with the fact that you feel good and you can be more active and you have less inflammation, like, it's kind of all of those things. It's not just one, one thing, you know,

Scott Benner 43:16
and not that I was eating crazy, but I'm not eating as much. I'm probably having less processed foods because of it. Because, I mean, honestly, I said to Jenny the other day while we were recording, but like, there's some things that you could offer me, I'd be like, I would not want that, right? And it is food that in the past that would be like, Yeah, that's right. I'll take a little of that.

Anonymous Female Speaker 43:33
Yeah. I mean, I eat far fewer treats when we go to theme parks now, you know, or on vacation, you know, like, we just came off of a five day all inclusive thing, and I didn't go crazy, like, the dessert. There was dessert there, you know, every meal had some aspect of dessert. And I just had, you know, like, half of a dessert after dinner every night. Yeah, yeah. Whereas before, like, I would have just been, like, sweet, sweet sweets all day, you know, it, it changes things. Yeah. We

Scott Benner 43:59
just had this thing. Kelly brought home a few petafores, and I had a vanilla one, right? And I said to her, I'm like, I said, what are these called? Are these called white trash PETA Fores? And she goes, why? I'm like, because they taste like, crimp. It's awesome. She's like, Yeah, you liked it. I was like, yeah. And then I could see on her face, she was like, Oh, I'm not getting any of these pet but the truth is, is I never went back and touch them again, right? One was enough, yeah. And she did ask later, because they got old, and we ended up throwing some of them away. And she goes, How come you didn't finish the white trash metaphors? And I was like, I don't know. I just didn't want it again. Yep, I don't know why. And I think if I would have said to myself forcefully eat one of these every six hours, I would have gotten like, like, through the second one, I would be like, oh, like, I would have got disappointed with myself. And then by the third one, I would have been like, this is nauseating. Yeah, yeah. That is not a thing that would have happened to me before

Anonymous Female Speaker 44:50
the trip. We, very much, like, both of us, hit that nauseating point when we're eating and it's just like, you know you're eating and you're enjoying your meal. And it can even be a healthy meal, right? You're enjoying. Your meal, and then just all of the sudden we hit a wall, and we're like, I can swallow this bite, but I cannot put anything else in my mouth. Yes, you know, it's, I love it when we you know, like, it feels good to hit that point and get full, you know, and recognize that, okay, I've had enough now, you

Scott Benner 45:16
know. And for people who would say like, oh, it's ruining food for you, it is not like food's not being ruined for me. I just it's not, yeah, I'm just not eating an amount that, like, I just don't need. And it there, it bears out in body size, because I'm obviously taking in plenty of calories. Like, I'm not, well, I'm not walking around here, like, going, like, Oh God, I can't hold myself up. I'm taking in the amount of calories my body needs, but

Anonymous Female Speaker 45:39
I'm taking in healthier calories now too. Like, I've never been a foodie. I've always had a sweet tooth, but that sweet tooth is much smaller now, and I need much less. You know, it might have taken four Oreos to satisfy me before, but now I'm good after, like, one or two. Yeah, so I'm putting more healthy things in my mouth and less junk. Yeah,

Scott Benner 45:58
it's a lot about how you want to think of it too. Like, I've heard people say, like, it ruined ice cream for me, and I'm like, You're 30 pounds lighter. Yeah, maybe not. Maybe you disagree. Maybe you're listening like, I'd prefer to have 30 pounds and need ice cream.

Anonymous Female Speaker 46:09
I mean, there are some things that I used to really enjoy that I just don't enjoy anymore because it nauseates me, but I still don't look at it as ruining that particular food item or treat. You know, I look at it as you know, it's really nice to not crave that all the time.

Scott Benner 46:30
It's nice to not be controlled by something is heavy. It's

Anonymous Female Speaker 46:32
nice to not have to have the willpower to say no to it, because it's just not appealing to me anymore. You know, it's not a fight that I have to fight anymore, which is nice. I cannot say the same thing about my daughter. She still gleefully enjoys absolutely everything, and still has to have some willpower when it comes to sweet things. Because, like I said, it's it's lessened her appetite, but she still has a very healthy appetite where we still have to say, okay, that's probably enough, or you probably don't need to go back for a second helping of that, you know, oh,

Scott Benner 47:07
she's young and she's growing still, yeah, all that. I mean,

Anonymous Female Speaker 47:11
at 17, yeah, young and growing and and a lot of it is social for her too. You know, it's when she gets together with her friends, they go out for pizza, you know, like, it's what they do at this age. And so I try not to harp on it too much. I'm just crossing my fingers when she, you know, moves away to college and is eating in the dining hall that it doesn't all just go to heck. But

Scott Benner 47:32
I'm worried. I mean, listen, I have no, no business being worried for your child. But like, I'm worried for because, like, I think, I think, God, what if it's her sophomore year? Yeah, all of a sudden she just needs the insulin again. You know? Oh,

Anonymous Female Speaker 47:47
yeah. That's that's definitely something that that I think about, and that's something that she's thought about too, because we had that conversation recently of like, what if I get to college and I get all settled and everything, and then all of the sudden my blood sugars just go off the rails. Yeah, and that's where we have the honest conversation of like, well, that's when you call me, and that's when you call the Endo, because we have our lovely concierge indo, you know, who's there at the drop of a hat for whatever we need. You know, we just, we'll cross that bridge when we get to it. And I don't even say if we get to it, because I feel like that holds out hope that we might not ever. I tend to be like, you know, we'll cross that bridge when we get to it, and then, if we never get there, we're pleasantly surprised, right? Like my typical optimism is living in the pessimistic side right now.

Scott Benner 48:33
Well, I, well, I remember interviewing that the gentleman that had this happen to him, right? He was like, type one for like, six years, but he was clearly Lada, but then he was also had a weight issue. So the doctor threw him on the med for weight, and then his insulin needs went, like, completely away. And I remember trying to say to him, it's not gonna last forever. And I felt like, if I'm remembering it correctly, because it's my takeaway from it, that he was sort of like, well, it might. And I thought, I guess maybe, but like, Yeah, I think you're just on a very slow, lot of progression. I mean, nobody knows, right? Who knows? Like, we're just guessing based on other conversations we've had with people. So

Anonymous Female Speaker 49:10
nobody knows. I mean, I know that there's been that one hell of I want to call it a trial, because it was like 10 people right that I found early on, when we were early in this process, that you know, followed these, these adults for a year, and after a year, you know, six or seven of them were still not on any insulin at all, after previously being on insulin. And so, like, I feel like there's hope for it to last a decent length of time, but past that, I feel like it's nobody knows, right? So it's, it's which way do you care to prepare yourself, right? Do you want to live in the glass half full, you know, like this is going to last for forever? Or do you live in the glass half empty, and then are pleasantly surprised? If it lasts,

Scott Benner 49:55
yeah, longer than you think it will just I, for me, I would just take as much of it as I. Got, yeah, exactly

Anonymous Female Speaker 50:01
like we're loving every minute of it, but are fully prepared, you know, with an action plan of, like, if we start to see, you know, this, right? Or if the A, 1c, hits this number, we'll re evaluate and see what we need to do differently. Yeah, it's interesting. I mean, I feel like it's honeymoon, right? Like, for folks that that experience the honeymoon, you know, think back to that timeframe of, you know, one day you needed virtually no insulin, and the next day you needed more, right? And that it was this roller coaster, or however long it lasted. I kind of feel like that's what this is, to a certain extent, right? Like it's just we're riding the roller coaster, and some days we have very little need, and some days we have a little bit more. We clearly don't have full need, right, of full insulin support. And so that's the way I'm choosing to look at it, is this is a honeymoon. It's going to end at some point, but I will continue to be thankful for every day that we get in our current reality, just

Scott Benner 51:03
not a honeymoon with, like, drastic, like, Yeah, well, I don't

Anonymous Female Speaker 51:06
know. Like, I feel like it was pretty drastic, having to go from one unit to four, if you think about it, like, that's a huge increase.

Scott Benner 51:13
I meant, like, the big meal spikes that you don't know if you should Bolus for or not, like, that kind of stuff, although you still said, like, you know, I can give her a unit, it's too much, or I can give her a, you know, it's too little, but right, you know, I'm saying, like, people look up during a honeymoon and, like, everything's fine, and then, you know, for four days they their blood sugars are 300 and they get the nerve up the Bolus for it. Then all of a sudden, the pancreas comes back in. Oh, don't worry, it's lows, yeah. Now you're putting in all the insulin,

Anonymous Female Speaker 51:39
yeah, yeah, no, it's definitely not drastic, but that's just the way that I'm choosing to look at it again. Like, definitely thankful that we had this happy accident and discovered, you know, that the GLP did this for her, and happy that it's still working for her. But really, you know, happy that she's healthy from a weight perspective, from a cholesterol perspective, like all the things, like, happy that she's healthy, happy that she's getting this, like, mental break during a time where she has all of these extra stressors, right? Of like driving and being comfortable driving alone, and then driving far distances alone, and then, you know, expanding her horizons and able to think about, you know, going away to school versus staying local for for school. You know, I'm happy that all of the stars aligned as they did when they did. For her sake.

Scott Benner 52:29
Don't let me put words in your mouth, okay, but I have a que. It really is a question. I just, I feel like people are gonna be like, you talk to her privately. You know this already, this is not a thing. I know. It's I'm wondering out loud, do you think if she doesn't see the GLP, if it never comes into her life, is she a severely overweight kid right now? Right now? No, I know. Without the GLP, if the GOP didn't show up, do you think she'd be an overweight person right now? She

Anonymous Female Speaker 52:54
was, I mean, she she, she met the BMI criteria to be prescribed to the GLP, right when she started it, and that number grew, you know, consistently. She was not plateaued by any stretch of the imagination. Yeah, you know, to all the naysayers, it wasn't because we ate crap, you know, we kept food journals. We worked with nutritionist, we worked with the Endo. Didn't matter. It didn't matter. It didn't matter. The one thing that we were not great at was exercise. But she was 13, you know,

Scott Benner 53:30
yeah, I mean, she's still moving around a

Anonymous Female Speaker 53:32
little. Nature is good at going to the gym. Could we have done better in that regard, absolutely. But would it have changed anything I, in my heart of hearts, really think it would

Scott Benner 53:42
not have, yeah, you're just, you're being generous. Right now, prior to

Anonymous Female Speaker 53:46
diagnosis, we both did weightlifting. We started weightlifting when she was eight, and found a gym that would train us together. And she was still a little chunk right at that point, and that was, you know, like we were weight lifting with the goal of doing a weight lifting competition, you know? So it wasn't we were just going to the gym and picking up this and picking up that, like, yeah, like we were doing deadlifts, and the kid at eight years old was dead lifting 140 pounds. Even if we'd have gotten to the gym every day, yeah, I don't think it would have addressed the issue, which I fully believe was the insulin resistance,

Scott Benner 54:24
right? Four years later, at 17, without the GLP, she would have been shockingly overweight. Like, correct? Yeah, I would have seen her and thought like, Oh, what happened to that kid? Like, that kind of thing, right? Yeah. Like,

Anonymous Female Speaker 54:35
like that. That would have been the kid that, you know, I hate to admit this, but we all do it, right? You look at them from a distance and you judge the parent, yeah.

Scott Benner 54:45
Then you're trying to give the background. Of the background is chicken, green beans, weight lifting, right? We weren't running 20 miles a week, but like, if you're 13 and you've got to be a CrossFit person, just not to be overweight, something, something's not right? I just want. People to, like, think of it that

Anonymous Female Speaker 55:01
way, like, right then we weren't doing the McDonald's every day or the pizza every day. Yeah, you know, we were eating healthy ish. I don't want to come across like we were, like, eating completely clean, high protein, no carbs, because that is far from the truth. But we were eating healthy. Ish, what we were eating should not have put that kind of weight on either one of us. You ate

Scott Benner 55:25
and acted in a way that made her weight surprising. Correct? She shouldn't have been where she was for what she was doing. And that's the thing. Like, I want people to hear and I don't think of it as like a visual thing. Like, I'm not coming from a like, a place of like, what people do or don't find visually appealing. I don't care about that. I'm talking about, like, a healthy amount of weight on your body or not so. And I bring it up because, for people who are listening to this right now who are like, Yeah, you know what? I don't actually eat that poorly, and I do move around a lot. Why is it I weigh 100 pounds more than I should? Like, I'm gonna tell you, it's because, like, there's some setting in your body that's not working quite right, and it sucks to then blame that person for their entire life, or blame their parent, like, Oh, what did you feed that kid, like that kind of crap, when this is just the metabolic misfire, right? Somewhere along the line, right? And also, by the way, isn't it interesting that we can in one side of our mouth have a conversation about all this processed food, what Agra is doing to us all. And like, did you know that, like, a cigarette company owns a food company and like, they're trying to kill you? Like, if that's true, then how come, once it happens to people, we go, Hey, what'd you do to screw this up? Like, wait, what like did you not just tell me all the food I have to eat is killing me? Like, here's what it looks like, you

Anonymous Female Speaker 56:45
know? And the thing too is, like, eating healthy is expensive, you know? And it's, I'm a single parent, right? So, single parent, single parent income. I have a very good job. Don't get me wrong, I get paid very well. We ought to be able to prioritize healthy food, right in our budget. But that's not the case for everybody. You know if, if all you can put on your table is the processed food, people are not going to just not eat. Yeah, what am I going to do? Starve? Right? I think that it's so unfair that that is the reality for so many people in and I hold out hope that we can pivot right and get rid of some of these ingredients that are, you know, causing all of these problems for folks, or lower prices on the healthy stuff. Like, there's got to be a way, right? There's got to be a way to get healthy food in front of people that doesn't cause them to, you know, not be able to pay the electric bill. Yeah, you know that that should not be a decision that anybody has to make, but I fully recognize that that is not the world that we live in, and that that is very much a decision that people have to make. And I hold no judgment right against that, you know, because if you see a kid that is not nourished in the way that you think they should be, you have to understand that there is more than likely, so much more to that story than what you see on the surface. And I just think that that's unfortunate, and I hate it, and it breaks my heart.

Scott Benner 58:15
I feel the same like when people are yelling about personal responsibility, like I'm not unfeeling of the idea that you're in control of your ID, your decisions, like, that's fine, but like you're saying, there's a lot of other implications that lead to the decisions you end up making, right? And then I just find it odd to hear from people you know, the same person who would tell you, like, the government's taking all my money through taxes. Like, you know, like they seem to see the pitfalls of other parts of their life, but like when it comes to this, they don't see the like, I'm broke, or I didn't understand what good health was, or I didn't understand what good eating was, and I got caught in a cycle. And you know, this happened to me, or guess what? I eat fine, but I have a metabolic issue and and it still happens to me, like, I don't understand the judgment part of it, right? I swear to you, the thing that confuses me most about glps is that, I mean, I have a little more, longer of a window. I'm older, right? So I'm 53 I lived through a time when, for a decade, people in media would talk about like, you know, this, you know, weights an issue. It would just be wonderful if modern medicine could figure this out. People just begged for that for

Unknown Speaker 59:25
years. Now, Modern medicine

Scott Benner 59:26
has figured it out. And everybody's like, lazy, mad about Yeah, I'm like, Oh, my God, you people are fickle.

Anonymous Female Speaker 59:32
And the piece that is important to remember too is like, weight is not the only thing, right, right? When you are overweight, you have so many other comorbidities that come along with that, and so it shouldn't matter why I'm the way that I am. What should matter is doing what I need to do to get healthy, because that then impacts heart health, you know, stroke risk, all of the other things. That kind of walk hand in hand with that weight. It's not all about the weight, and that's where I've tried to keep it with my teenager. Is, you know, it's not just the weight, it's health, like we need to be healthy, right? Whatever you need to do to get there. It shouldn't matter. All that should matter is that you get there.

Scott Benner 1:00:20
I don't care how you have to get to happy today. Live a long time. Whatever that is, do that, if it's right. And for some of you, it will be chicken and green beans and sit ups and it's awesome, like, right? But again, you don't I, you know this person's not saying their name because of people who will be like, nasty to her, right? You can hear it like it's one of my questions for you, like you have such a great attitude. Like, I always wonder that about you, like you're a very upbeat person. You're hearing from a person who's being honest with you. They're telling you what happened. They're telling you, look, I didn't eat great, but we ate really well. We tried really hard. We were keeping food journals. We were doing the thing my daughter was still gaining weight constantly. She was on her way to something unhealthy. Er, and what do you care how we got back to it like she's happy and she's healthy and she's on her way? And why would you care if that involves a pill or an injection or and in my mind, it's you're so willing to point at like, red dye number this and say, look, it's killing us. It's okay to agree that when something's added to our diet, that it could be bad for us, but if we can add something to it, that would be good for us, and it's an unnaturally added thing, like, suddenly that's wrong. I don't know where that comes from,

Anonymous Female Speaker 1:01:33
and I fully recognize that there are people out there who have terrible, horrible side effects. Yeah, no certain medications, right? And I am so, so, so sorry that that happened to those people. And I promise that if any point in time, myself or my kiddo start having terrible, horrible side

Scott Benner 1:01:54
effects, you come back and tell somebody Yeah, and you would tell somebody to know,

Anonymous Female Speaker 1:01:59
like, we figure it out, I it's not one of those things where I'm going to be a lot of people see it as reckless to put these medications into their bodies. And this is not something that I'm even though I am so so so happy with how we are doing with them and how we feel if at any point the tides turn, going to keep, you know, injecting it right? Like I if we're ever given a reason that we need to quit, we figure it out, right? Yeah, I just want to, don't want to minimize the experiences of other people, right? And, and I it sucks that that happened to people thyroid medication, there's one that I have a really crappy reaction to and one that I don't right. And so I'm gonna take the one that works well for me, not the one that I have the crappy reaction to, and the one that I have the crappy reaction to is the one that, like 99% of all the other people take, just fine, you know? And so not every kid, every medication is meant for every person, so I want to acknowledge that too, you know it. And so it's not because a lot of people will come after this and be like, Oh, you're being reckless, you're endangering. You're both of your child, you know? I appreciate your perspective, and I appreciate your opinion, and I appreciate whatever your experiences have been. I'm just sharing ours, right, you know. And if you haven't figured it out, I'm extremely type A and I'm paying very close attention to everything. And so is our doctor, you know. It's not a negligent, you know, throwing caution to the wind type of thing.

Scott Benner 1:03:36
I would tell you the same thing. I also do feel very badly for anybody who you know has heard about any medication and then tried it and had a not a good experience, but a bad experience like that. Sucks that it didn't work for everybody. It really does. Doesn't mean it's not working for you. And I would also say, slightly provocatively, don't tell me I'm being reckless with your vape in one hand and a Dr Pepper in the other hand, because that happens too. Like sometimes I see the people pushing back, and I'm like, You're not exactly the bastion of health over here. See, it almost feels like a political stance to me. This is what I believe, that if you just work out and do a sit up, this will be okay. Sure, I'm overweight too, but it's because I don't do a sit up, and you don't get to cheat your way to the front of the line. Like that whole like that part of the conversation confuses the hell out of me. The rest of it, I understand that part gets me. I don't understand how people have like reactions like that, which I've seen over and over again, and I've seen to my face. I've heard on the podcast, I've heard I've seen it online, like, that idea of like, you cheated, and like, I'm like, oh God. Like, I mean, I'm just trying to stay alive over here,

Anonymous Female Speaker 1:04:40
right? See it as a cheat, whatever. But like before, I quote, unquote, cheated. I worked my ass off.

Scott Benner 1:04:46
I tried a lot of things.

Anonymous Female Speaker 1:04:50
If you see me indulging in, you know, a slice of chocolate cake, or you don't see me in the gym five days a week, you know, I did. My time. Hey, listen, I

Scott Benner 1:05:02
want to say the pet of four. I was an inch across then an inch high. It was first, right,

Anonymous Female Speaker 1:05:06
right? Well, like and we went on our little all inclusive vacation. And you know, the portions that they serve you at those places are tiny, right? Because you can have as much as you want. You might order a piece of cheesecake. It. It's like the teeniest, slenderest piece of cheesecake that could ever possibly serve without it just completely breaking. And I would eat, like, four bites of it.

Scott Benner 1:05:25
We definitely save money sometimes at restaurants, you know, the end of the meal, some they're like, Do you want a dessert? And we're like, we have to come up with one that we can all agree on, because, right, everyone's going to just stick a fork in it for a minute.

Anonymous Female Speaker 1:05:38
We definitely save money at restaurants, because we split meals. Now, you know, no no longer ordering, you know, two separate meals. It's we order one and still have some left when we're done. I

Scott Benner 1:05:47
swear to you. Martin and I went out the other day, and I was like, What are you getting? And she said, what she's getting. I was like, I was gonna get that. And she goes, Why don't we just get one and

Anonymous Female Speaker 1:05:55
split it? I was like, that's a good idea. Or, like, kids meals. I'm like, they laughed at me at the vacation place because, like, I was always and forever ordering off the kids menu. Because a I like plain food. I'm not an adventurous eater, but I also know I'm not going to eat very much. And so I would order the kids meal, you know, and they'll, they'll serve a steak and potatoes on the kids meal. And so I would order the kids steak and baked potato and eat, like, you know, three quarters of it and be perfectly content.

Scott Benner 1:06:22
All right. Is there anything I haven't asked you about that you would want people to know about? I don't

Anonymous Female Speaker 1:06:26
think so. I mean, it's been an interesting journey. I don't know where it will go next, but I know I'm loving living in this moment. You know? I love that my teenager is off with friends at a theme park today, and her blood sugar is currently 85 and I know she's had lots of wonderful treats because she loves the treats. And it's 8 million degrees outside, and the heat's not kicking her butt, and I haven't gotten a Dexcom alarm in, you know, a couple of weeks, awesome, and so I'm loving it. I hope that more people have the opportunity to try this, you know, and see what it can do for them. But the same disclaimer that I left at the end of of the first episode, please don't just go get a GLP from some Med Spa somewhere without knowing how insulin works. How insulin works for you, and fully prepared to pivot and make adjustments quickly, yeah. Because when we very first started this journey, things changed, and things changed fast on a large scale, you know, the the adjustments that we made were not reducing, weakening our carb factor by one, you know, 25 and 30% cuts of basal every two days. You know, like ridiculously fast and so please don't willy nilly, get your hands on a GLP one from somewhere and jump in without being fully prepared and without having resources to help you along the journey. If

Scott Benner 1:08:01
you are one of those people who's having like, significant insulin resistance, you don't realize it. And this GLP jumps in and starts working right away. The amount of insulin you're using could be significantly too much. Yes, make yourself low really easily. I'll have

Anonymous Female Speaker 1:08:15
to go back and listen to the episode to remember exactly, but I feel like it was like within the first month, we were using half the amount of insulin, and it was quick, and it was, it was scary, and I, I'm type A, I know what I need to do. I have my plans. I have my supplies. I'm constantly have, you know, blood sugar numbers up somewhere visible at all times. And I even got rattled. You know, I'm not saying I'm the end all be, all of diabetes management as far from from the case, but, like, I was 100% involved and invested in my daughter's diabetes management pre GLP one, yeah, and it still rattled me. And so I just, I just want to say that same disclaimer of like, you know, please, if you want to do this and you want to try this, please make sure you have your squad with you, right? Make sure you have somebody to walk the journey with you. Don't just jump in blindly and not know. You know if you're not comfortable making changes to your insulin dosages, do not take a GLP one, unless you have a doctor or someone that's going to hold your hand through the journey, right? Like know that about yourself before you jump in. You are going

Scott Benner 1:09:19
to have to be comfortable making those adjustments and making them pretty quickly. Pretty quickly. So, yeah,

Anonymous Female Speaker 1:09:23
yeah. So that's that's just what I want to leave with people. And I know I said the same thing the last time, but I don't want, I want folks to get excited about the possibilities, but I don't want you to get so excited that you don't think it through fully before you jump in.

Scott Benner 1:09:36
Right? I would also tell you, like be prepared to be one of the people who has type one and takes it and goes, this did not change anything for me, right? Like it could, very well could be the case. And like I said, I think it has more to do with what you're going to see become more prevalent over time, which is you're going to start seeing more and more people getting a dual diagnosis of like insulin resistant type two and. In type one. And if that doesn't make sense, you should go find the episode with Dr Hamdi and listen to him describe it. But he says that the way we diagnose diabetes is going to change quickly, and he is one of the people in the medical profession who has a say about how things like that happen. So right, you're definitely going to see more and more of it coming up. So okay, well,

Anonymous Female Speaker 1:10:21
thank you very much. The last note I want to leave with people, because you know me, and I'm the eternal optimist, is, if you're listening to this, you are doing a good job. You are investing in your health, or your child's health or someone that you care about. Keep doing that. There are going to be hard days, but there are going to be good days, so don't give up, and be sure to let us know how we can help.

Scott Benner 1:10:43
Oh, absolutely, yeah, yeah. Have a community, be a part of a community. And I think the same thing like, no matter what your outcomes are, it's your effort and your interest. I think that is the most important. I end up saying that to a lot of people when I speak to them privately and they're scared or it's new, and I say, No, you're going to be okay. And they want to know how you how can you how can you tell and I said, Well, you're asking the right questions. You're interested and you're motivated to do something about it that, generally speaking, is what it takes to get there,

Speaker 1 1:11:10
correct? So keep up the hard work. We're all here rooting for you. Cool.

Scott Benner 1:11:13
Thank you so much. I appreciate it. Yep, bye. You

the podcast you just enjoyed was sponsored by tandem diabetes care. Learn more about tandems, newest automated insulin delivery system, tandem Moby, with control iq plus technology at tandem diabetes.com/juicebox there are links in the show notes and links at Juicebox podcast.com, the conversation you just enjoyed was brought to you by us. Med, us. Med.com/juicebox, or call 888-721-1514, get started today and get your supplies from us. Med, hey, thanks for listening all the way to the end. I really appreciate your loyalty and listenership. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox podcast. If you're looking for community around type one diabetes, check out the Juicebox podcast. Private Facebook group Juicebox podcast, type one diabetes, but everybody is welcome type one, type two, gestational loved ones. It doesn't matter to me if you're impacted by diabetes and you're looking for support, comfort or community, check out Juicebox podcast. Type one diabetes on Facebook. The episode you just heard was professionally edited by wrong way recording, wrong wayrecording.com.

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#1589 Fun Diagnosis

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio -  Radio Public, Amazon Alexa or wherever they get audio.

Tyler, 16, was diagnosed with T1D through TrialNet after testing positive—his dad has T1D, his mom T2. Three years in, he’s navigating diabetes with a family who gets it.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Friends, we're all back together for the next episode of The Juicebox podcast. Welcome.

Tyler Hoskins 0:15
I'm Tyler Hoskins. I've been diabetic for three or four years now, and the way I got diagnosed, it's not the way that most people do. So I was a part of a research study through a company called trial net.

Scott Benner 0:35
Check out my algorithm pumping series to help you make sense of automated insulin delivery systems like Omnipod, five loop, Medtronic, 780, G twist, tandem control, IQ and much more. Each episode will dive into the setup features and real world usage tips that can transform your daily type one diabetes management. We cut through the jargon, share personal experiences and show you how these algorithms can simplify and streamline your care. If you're curious about automated insulin pumping, go find the algorithm pumping series in the Juicebox podcast. Easiest way Juicebox podcast.com, and go up into the menu, click on series, and it'll be right there. Nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan.

The episode you're about to listen to was sponsored by touched by type one. Go check them out right now on Facebook, Instagram, and of course, at touched by type one.org check out that Programs tab when you get to the website to see all the great things that they're doing for people living with type one diabetes. Touched by type one.org. I'm having an on body vibe alert. This episode of The Juicebox podcast is sponsored by ever since 365 the only one year where CGM that's one insertion and one CGM a year, one CGM one year, not every 10 or 14 days ever since cgm.com/juicebox this episode of The Juicebox podcast is Sponsored by the Omnipod five and at my link, omnipod.com/juicebox you can get yourself a free, what I just say, a free Omnipod five starter kit, free, get out of here. Go click on that link, omnipod.com/juicebox check it out. Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox. Links in the show notes. Links at Juicebox podcast.com.

Tyler Hoskins 2:48
I'm Tyler Hoskins. I've been diabetic for three or four years now, and the way I got diagnosed, it's not the way that most people do. So I was a part of a research study through a company called trial net. They started doing early detection for diabetics, and I was a part of the research study before I was diabetic. Both my parents are diabetic. It pretty much runs in my family for a long time, and all they did was just sent us a little package with a lancet and a little tube, a little vial, and asked us to fill it up with blood, sent it back. All three of my siblings, or me and my two other siblings did this. It's through antibodies. So when they sent us results, I think normal for one antibody in specific. Don't remember which one it is. It was around 20, and my antibody count was somewhere around 600 what

Scott Benner 3:53
do they check for five different auto antibodies? And you're saying that 20 is like a level for one of them, and yours was like off the chart, yeah. Oh, and did you just have one at that point that was off the chart? Or did you have more than one? Did you have up the five or I

Tyler Hoskins 4:07
had two others that were a little higher, not as high as that. Do

Scott Benner 4:13
you remember which one had the big number? I don't know. That's okay. So you found out through the mail. Yeah, yeah, you're right. Not a lot of people find out through the mail, your mom and dad both have type one. My dad is type one. My mom is type two. Mom is type two. Anybody else type one besides you and your and your dad, just a lot of extended family in your head. You don't have to say their names, obviously, but like, count them off in your head, give me his like, like an aunt, a cousin, like, that kind of thing. Five or six. Five or six. How about other autoimmune stuff? Do you have hypothyroidism? Nope, no. Does anybody else?

Tyler Hoskins 4:53
My mom, she has something with her thyroid. Don't know what? It's not celiac. I do have a diabetic cousin. She does have the celiac, okay,

Scott Benner 5:04
type one in celiac. Your cousin, yeah, yeah. Tell people how old you are. I'm sorry we didn't go to Yeah, I'm 16. Okay, you said three or four years. How old were you when you were diagnosed? I

Tyler Hoskins 5:15
was diagnosed sixth grade, so 12 maybe,

Scott Benner 5:19
right? So first of all, when your parents decide to do trial net for you and your siblings, and by the way, did you any of your siblings have markers?

Tyler Hoskins 5:28
My brother, he had some markers, not a concerning amount. He's one. He's one now, and he's still not diabetic, okay? And my sister came back. She has no antibodies at all. Okay,

Scott Benner 5:41
so when they come to you originally, do you remember them saying, like, why they were poking a hole in your finger in the middle of the

Tyler Hoskins 5:47
living room? It's been a concern that I was starting to become diabetic for a while. It was Christmas the year before, and Christmas foods a lot of sugar. My dad, he noticed I was going to the bathroom a lot, so he got out his meter, changed the needle, all that, and told me to test my blood sugar, and it was like 203, or something. Not concerning now that I'm diabetic, but I'm sure that's pretty concerning for a non diabetic.

Scott Benner 6:18
Yeah, I think most people would tell you that a fasting blood sugar of over 140 would be concerning, and that a 200 even after a meal, if you, if you don't have type one, you shouldn't really get to 200 so your dad was on to it, yeah, yeah. Okay. Does he tell you at that point, you remember him saying, Did he go, oh, let me check your blood sugar. Everything's cool, run off and play. Or was he, like, Did he say something more specific about what was

Tyler Hoskins 6:45
happening at that point? I kind of like, knew diabetes management as a general sense, and I kind of knew 200 was a little high. It was like, couple days after that, he put one of his old G fives on me, since he was on the g6 at that point, but still had some g5 laying around. And it would spike up to 200 every now and then if I have, like, a really heavy carb meal. But other than that, it would stay generally in diabetic range, not

Scott Benner 7:19
non diabetic or diabetic range. Diabetic range. Okay, so, yeah, you were looking like type one. Now at that age, is that scary? I'm trying to figure out your mind, like your your headspace around that at that point, it

Tyler Hoskins 7:34
didn't really scare me at all, since I've grown up with a lot of diabetic family, and they always seemed just fine with it. Gotcha. After that, my parents went to, I think it was my pediatrician, and showed them, hey, this is what my son's blood sugar is. It's not normal. And they said something along the lines of, we really can't do anything until something like really bad happens. Did you try going to an endo after that? After that, we just kind of watched my blood sugar every now and then, made sure I wasn't like three hundreds. And then, I don't remember how my parents learned about trial net, but they learned about it, so they decided to get me and my two siblings tested. Yeah, and then after that, they noticed me and my brother's antibodies were high. Mine were a lot higher than his. So then they took us to a hospital down in Indianapolis. They went and did a glucose tolerance test. Was the first thing, yeah, they noticed mine was higher than it should be. My brothers was just fine, and then they went and did an MRI of

Scott Benner 8:45
our pancreas, really? Yeah, do you remember why they did

Tyler Hoskins 8:50
that? The doctor said they're just trying to figure out, like, ways of early detection in diabetes. Oh, okay, so this was before trial. NET is where it is now, this was in its beta stages.

Scott Benner 9:02
This was part of the process of being involved with trial net, yeah, I

Tyler Hoskins 9:07
see, okay, since doctors wouldn't do anything. So he went to trial net, yeah, I see.

Scott Benner 9:12
And they sent you out to this facility in Indianapolis. Yep, got it. Got it. Got it. I mean, at this point, like, you know, right? Like, I have type one, or even if it hasn't started, started, it's on its way, and it's coming.

Tyler Hoskins 9:25
I could tell I'm gonna be type one, if I'm not considered that already. We had quite a long period where I wasn't sure if I was type one or not yet, because no one really diagnosed me yet.

Scott Benner 9:41
Yeah. How long was that process of not knowing? Knowing?

Tyler Hoskins 9:45
It was about five months. Oh, geez, where I knew my blood sugar is not normal, but it wasn't. No one ever told me. Hey, you're diabetic, but you're figuring

Scott Benner 9:59
it out. As you go, Yeah, how's your overall health at that point? Did you feel run down? Were you losing weight? Was anything like that happening?

Tyler Hoskins 10:09
I felt fine, really. I noticed, like, if I didn't eat for a while, I would have, like, low blood sugar symptoms, but nothing concerning.

Scott Benner 10:19
Okay, all right, I see so how long till after Indianapolis do you get a diagnosis and start using insulin? Today's episode is brought to you by Omnipod. Did you know that the majority of Omnipod five users pay less than $30 per month at the pharmacy? That's less than $1 a day for tube free automated insulin delivery, and a third of Omnipod five users pay $0 per month. You heard that, right? Zero? That's less than your daily coffee for all of the benefits of tubeless, waterproof, automated insulin delivery. My daughter has been wearing an Omnipod every day since she was four years old, and she's about to be 21 my family relies on Omnipod, and I think you'll love it, and you can try it for free right now by requesting your free Starter Kit today at my link, omnipod.com/juicebox Omnipod has been an advertiser for a decade. But even if they weren't, I would tell you proudly, my daughter wears an Omnipod. Omnipod.com/juicebox Terms and Conditions apply. Eligibility may vary. Why don't you get yourself that free starter kit, full terms and conditions can be found at omnipod.com/juicebox, today's episode is sponsored by a long term CGM. It's going to help you to stay on top of your glucose readings the ever since 365 I'm talking, of course, about the world's first and only CGM that lasts for one year, one year, one CGM. Are you tired of those other CGM the ones that give you all those problems that you didn't expect, knocking them off, false alerts not lasting as long as they're supposed to. If you're tired of those constant frustrations, use my link ever since cgm.com/juicebox to learn more about the ever since 365 some of you may be able to experience the ever since 365 for as low as $199 for a full year. At my link, you'll find those details and can learn about eligibility. Ever since cgm.com/juice box, Juicebox, check it out.

Tyler Hoskins 12:24
So after Indianapolis, I don't really remember the timeframe, they sent me up with a local endocrinologist, and they went over the results, and they're the ones that said you're diabetic, and the way they started me on insulin was a little weird, since at this point, you know, my pancreas still worked, yeah, but not all the way. They gave me long acting insulin. They just never told me to use it. They they gave me Lantis, right? Never used it. And they told me at the very beginning, if your blood sugar is over 202 hours after eating,

Scott Benner 13:03
then take insulin. But Lantis, no,

Tyler Hoskins 13:07
the they gave me Nova log. They gave you Nova log too. Okay, yeah, I was like, the Lantus was just sitting in our fridge. Never used Gotcha. So two hours after eating over 200 then I would go and take, like, a unit of insulin I couldn't do anything about if I know I'm gonna have a carb heavy meal sometimes. One time during Thanksgiving, I went and took, like, a unit and a half, maybe two. My doctor didn't tell me to do that. I just figured I'm gonna go high.

Scott Benner 13:34
You do that on your own, Tyler. Did you do that with your parents? My dad told me to Yeah. I was gonna say, like, how long has your dad had type one? He's had it

Tyler Hoskins 13:42
since he was about my age, and he's mid 40s now. Yeah, so he's he knows what's going on. Yeah, he's had it for a long time. He probably wanted

Scott Benner 13:52
to get moving with covering at least those carb heavy meals at the in the moment, right? Yeah, were you guys just kind of stuck feeling like you had to listen to the doctor, or did it feel like you were doing the right thing? It

Tyler Hoskins 14:05
was kind of frustrating, since my dad knew how to take care of like a full diabetic. But the doctor was just telling me, just put it off. Just keep putting off me getting full diabetes until it comes.

Scott Benner 14:21
It's a weird way to think of it. You know what I mean? Like, yeah, I don't know. Like, if you're going to spike at a meal and you don't need basal, then give yourself some insulin before the meal so you don't spike. Like, that doesn't seem crazy to me. It doesn't, I don't know if that makes a ton of sense to me, but whatever, I mean, it's what they did, right? Yeah, yeah. And then was this, like, a very slow onset, or did it come all at once? Once it came,

Tyler Hoskins 14:43
it still took quite a while. After a while, I still know long acting insulin. I asked if I could switch to a pump, since I didn't like giving myself shots, and they said, since I was still on. Very little amount of insulin. They said we will try and give you a pump. No idea if it'll actually work. I wanted the Omnipod five at that point, so I got it, tried it. It did pretty good for quite a while. I had it for maybe two years, and then just last week, I switched to the Moby. What made you switch? My dad, he has a x2 and I've seen a lot of people who have the Moby, mainly at a camp I go to for diabetes. Everyone who has the Moby talks about how great it is and how much they love it. The Omnipod, it still worked, just I didn't really feel like I liked it as much anymore.

Scott Benner 15:44
What about it? Was it the algorithm? Was it the form factor

Tyler Hoskins 15:49
after meals, I would always go high, and then, like I would change ratios, I'd still kind of go high. I felt like OmniPods algorithm wasn't quite aggressive enough for what I needed. So everyone was telling me how they had similar problems, and they switched to the Mobi, and mobi worked great for them. Did

Scott Benner 16:09
you ever try resetting the Omnipod five like changing your manual settings, getting them and then putting it back into automation again to see if maybe your needs had changed? I've changed my ratios and all that. My point is this, the ship sailed already. But yeah, if you're running Omnipod five and automation, like, you know, for a while, and let's say you got a foot taller, you can change, I don't know you somehow your weight change gained weight. If you just go into settings and change your settings, that doesn't change how automation works. It changes your manual settings. So you'd have to reset the system, put in those new settings into manual, then restart automation, like wiping it clean and starting over again, and then it would start over with those new settings. There are settings in Omnipod five that while you're in automation, no matter how much you change them, they're not impacting automation. They're only impacting manual. If you're in manual, does that make sense? Yeah, yeah. If that's the thing people don't tell you, then you feel like you're making it stronger, or doing whatever you're trying to do and making it weaker, etc, and you're not actually touching it. The algorithm still doing what it thinks is right. Anyway, like I said, Yeah, horses out of the barn on that one, yeah, important to know for other people. Okay, got the Moby you're you're liking it, and how long you've been using it, about a week now. Oh, okay, and what are your findings?

Tyler Hoskins 17:31
First day or two was a little rough, but after that, it started working great. I didn't really spike as high after meals right now, my timing range is 96

Scott Benner 17:45
what's the spike look like now after a meal?

Tyler Hoskins 17:47
So with this, after, like yesterday for dinner, I went and had, I think it was hot dogs. And then after that, you know, blood sugar went from 109 to 130 after hot dogs, not too terrible. Then when I was 130 I went and had peach cobbler, which then spiked me up to 205 and then after that, the Moby went and brought it right back down to where it's supposed to be, and stayed that way rest of the night.

Scott Benner 18:18
After you hit the 205 peak, how long do you think it was until you were back to where you wanted to be?

Tyler Hoskins 18:24
I was back down to, like, 150 so the peak was at 552 okay, I was back to 150 at 630

Scott Benner 18:36
did you Pre-Bolus, the cobbler? Yeah. Do you remember how much you gave? Like, how long I gave it 15 minutes. Very nice, but that's a lot of sugar, right? Hit you pretty quick. Yeah,

Tyler Hoskins 18:46
peach cobbler with ice cream on it. You

Scott Benner 18:50
said peach cobbler. PE you had peach cobbler and ice cream. I see what you're saying. Yeah, there's a lot, a lot of sugar happening. Okay, awesome. That's great, man. I'm happy for you. Do you wear it on, like, with a long piece of tubing, or do you kind of wear it on your body with a short piece?

Tyler Hoskins 19:03
I have the long tubing right now, and first couple days I had it in my pocket, but I just put on that body patch. I like it a lot better, especially when I'm, like, sleeping, okay, since I'll roll around a lot, and I've noticed it started getting caught on something and started

Scott Benner 19:24
polling, yeah, but so I was gonna ask you, after using Omnipod for so long, like, what was it like with the tubing and the Where do you even put the is the thing I can't even imagine, because my daughter's only ever went on Omnipod, but like, where do you put the device at The end of the tubing when you're sleeping, like on a table. Is it in bed with you? What do you do?

Tyler Hoskins 19:44
I use the belt clip it had, and it'll just clip it to my underwear.

Scott Benner 19:49
Gotcha needs to be kind of clipped to you.

Tyler Hoskins 19:52
Yeah? First night I just had it just kind of roaming around, and I didn't like that so much. Yeah. Yeah, I don't know, it felt like I'd roll over and they'd be like, pulling on the site, like,

Scott Benner 20:05
when you fall asleep with your Airpods, in the case, and then you wake up and they're like, under your hip or something like that. Yeah, yeah. Do you fall asleep with your headphones in ever? Rarely. I do it all the time. I wonder, I always wonder, what other people do. Like, I love listening to this stuff as I'm falling asleep, but then, like, you wake up, like I said, you know, like searching the bed, looking for the air pod, can't find anywhere. It's like under a pillow on the other side of the bed and stuff. Then I inevitably try to put them in the case so they won't be dead in the morning, drop it on the floor. We have hardwood, so it hits, makes a ton of noise. My wife said, what was that? What was that? It's a whole thing, Tyler, you're better off where you are. You're 16 now. You've had type one for for a while, yeah, since 2022 so getting past your diagnosis, what's it been like? I mean, it's a formidable age, right? You're getting older, and you're 16 now. To you driving yet,

Tyler Hoskins 20:53
I have my permit right now so I can drive with my parent. Okay,

Scott Benner 20:57
so you're going through all that give a good friend group, or you got people messing with you about the diabetes? Are they supportive? Like, what's been your findings over the last couple of years?

Tyler Hoskins 21:07
All my friends, they know I'm diabetic. They don't really know much about it. For them, like, my diabetes is just kind of there. It's not really in the way it's they don't really care much about it. It's just kind of

Scott Benner 21:22
there. You have a close friend that would know what to do if you had trouble.

Tyler Hoskins 21:26
They all know what to do if I end up going down.

Scott Benner 21:29
Has that ever happened? Nope, no. Okay. You play any sports? Nope. Not anymore. Not anymore. Did diabetes get in the way of the sports? Or is it just something you naturally stop

Tyler Hoskins 21:39
doing? I did play football for two years. Then I became diabetic. That is one of the reasons I don't do football anymore. Back then, it was through the parks department, so they didn't make any cuts, any of that. So I played it for two years. And then if you wanted to keep playing football, you would have to join the school's team, which not a big fan of the school's team. Okay, they make cuts. Not really sure if I could make the cuts or not. Yeah, you're playing for fun. Yeah, yeah, gotcha. And having the Dexcom and Omnipod on at that time, that was one of the reasons that I didn't do football anymore.

Scott Benner 22:19
You weren't sure quite how to handle that. Yeah, I see. How about during activity? Was your blood sugar? Okay?

Tyler Hoskins 22:26
Yeah, it was fine during most activities. Good, good, good. If it's like a really intense activity that I'm doing, I put on activity mode in Omnipod for my Moby. If it's a really intense activity, which most of the time, most of my activity is just swimming, so I won't have a pump on. Anyways, yeah,

Scott Benner 22:45
gotcha,

Tyler Hoskins 22:46
have you swam? Now, with a pump you had to disconnect, versus a pump you didn't have to couple times. Now what's the difference? I thought it was interesting. First time I tried the movie, I disconnected. It turned off. Insulin, just put it down. Then I noticed when I was swimming, my blood sugar still went low. This was like half an hour, maybe an hour after I disconnected, okay, and then I started feeling a little low. So I checked my blood sugar, and it was like 75 so I thought it was a little weird. Since I haven't had insulin in like an hour, I still went low.

Scott Benner 23:25
Did you get low when you were swimming on Omnipod five? Not

Tyler Hoskins 23:29
a crazy amount, okay, all right, but it would still happen now and then.

Scott Benner 23:33
So everything's very variable, you know, yeah, it's hard to put your finger on what's going on. Sometimes people don't give you a crap about it. You don't seem like you care at all that you have diabetes. It's not a thing that's affecting you

Tyler Hoskins 23:45
psychologically. No, it's just kind of there. I deal with it. It's just there.

Scott Benner 23:51
Do you feel closer to your dad because you have it now?

Tyler Hoskins 23:55
He does help quite a bit. We have had a lot of more bonding time with it, and it's kind of funny. So my mom, she has follow on both me and my dad, and it's funny since my brother, he's moved out now, so it's just me and my sister and mom and dad. So whenever mom's phone would beep, my sister would always guess who's beeping. She started getting really good at it. It's kind of scary. Do you

Scott Benner 24:26
and your dad have similar outcomes? Like, because I imagine you're managing reasonably similarly, right? He probably taught you how to do it. And so, like, I'm wondering, like, do meals end and you guys end up kind of in the same place, or is it wildly different?

Tyler Hoskins 24:41
Sometimes, like after we eat, I'll notice I'm going high, so I'll ask him, and sometimes he's also going high. But one thing my sister noticed more of the urgent lows are my dad. So whenever she hears the urgent low sound from my mom's phone. Hmm, she'll always guess dad, and almost all the time, it is him. What do you think he's doing differently than you? I have no idea what he's the one that taught me how to do everything.

Scott Benner 25:12
Yeah, maybe you've refined the process. Maybe you should have to teach him. I'm sure he'd be thrilled if you came back to him and said, Hey, Dad, I I've been noticing a lot of urgent lows on you lately. Maybe you'd like to watch me see what I'm doing so you can figure this out.

Tyler Hoskins 25:27
Did he have a pump his whole life? He started out just on syringes, yeah, and I think he didn't really get a pump until he was

Scott Benner 25:36
married. Okay? You think your mom made him do it.

Tyler Hoskins 25:41
I don't think she really made him. She might have suggested it.

Scott Benner 25:44
Yeah, well, you're not married, Tyler, that's made him, but I understand that. You don't know that yet. Yeah, yeah. But no, you think like once he got married, he was maybe looking to refine his control a little bit, yeah, so

Tyler Hoskins 25:58
he started out with Medtronic, and I have no idea how long he had it, but of he talked about how he didn't really like Medtronic. They're pumping guardian. I think he had a guardian. He said that they were okay, but it was their customer support back in the day. He said he didn't like that as much. Okay, so eventually he switched to a T slim, and as far as I can remember, he's always had a tea slim.

Scott Benner 26:30
Okay, where are you guys located? Like, because you said you went, I think you said down to Indianapolis, but you sound like you're, I'm worried that your voice is gonna sound deeper than mine on this podcast. So, like, it's hard to tell where you're from, but you have a little bit of a, like, I can't decide if there's like a steer near your house, or if you're more like, upper

Tyler Hoskins 26:50
midwest, northeast Indiana. Oh, okay.

Scott Benner 26:53
Oh, you're, you're still in Indiana. I got you, yeah, okay. But northeast I see all right, you live there your whole life. Yep, yeah. You have any ideas about where you might want to go to college, or if you want to go,

Tyler Hoskins 27:05
I have somewhat of an idea what I want to do. So my brother, he lives in Florida, now, got a really good flight school opportunity, so he took that, ended up working at the flight school, and then now he's the Chief of Operations at the flight school. Oh, wow. So he stopped his flight schooling, and now just is Chief of Operations at the flight school, and here end of July, he told me I could get an internship at their maintenance department, which I've thought maintenance or engineering or something like that is kind of cool for a while now. Yeah, so he told me he got me a two week internship with the airplane maintenance down at his flight school. Go give it a try. I'm going to give it a try right now. I want to go into avionics.

Scott Benner 27:56
Is that a thing you'd go to like a specific school for after high school? It's

Tyler Hoskins 28:00
kind of like a trade school. Okay? It's down in Florida. Darman, you

Scott Benner 28:07
learn to work on the planes then, yeah, I got you. Is your brother a pilot? He's still

Tyler Hoskins 28:12
slowly doing his flight training. I think he's close to his commercial license right now. Oh,

Scott Benner 28:18
no kidding, does the whole family fly? Or is it just the thing that your brother does,

Tyler Hoskins 28:21
just him, he's taken us

Scott Benner 28:24
up in airplanes. It seems safe. You were, you felt comfortable. It was a little bumpy, but I trusted him. I don't trust anybody that much. Tyler, I was on a plane last week, and we were coming into Houston, and, like, We're descending, or maybe, like a 3000 feet, and we just hit, like a again, one of those dead pockets where the plane feels like it jumps through the turbulence. This lady, like, four or five rows behind me, she started screaming, and she did not stop. I mean, like, long after everyone was like, Oh, it's over. That was fine. And it was just one big bump. She was still going. And I was seated next to these, these two little kids, like these, these sisters, they were, must be like seven and like nine or something like that. By the way, best people I've ever sat next to on a plane in my entire life. They were just like, quiet and lovely and polite and everything. And their father was like, across from us. And now I feel like I have to explain Tyler that when, like, I was already in my seat on the aisle, I like to sit in the aisle, right? And then the father comes up and, like, gestures to me that the two seats next to them are for his daughters, and he's across the aisle. And so I think, because I'm a good person, Tyler, yeah, I think I'm gonna let the dad sit here. You know what I mean? Like, why not? Right? But then I look over to see that he has the middle seat, and the guy next to him on the aisle was he was taken up more than his fair share. You know what I'm saying? Yeah, and his beard looked like maybe it didn't get a full washing that day. And I looked up to say to the dad. Just take my seat, but kind of scan the whole situation very quickly. And I looked up and I said, Hey, don't worry, I've raised two kids. They're still alive. I'll take good care of them, like they got it. I was like, Hey, girls, I'm Scott, what's your name? And they like, introduce themselves. I'm like, You need anything? You tell me. I'll tell your dad. Okay. And they were like, right on. So like, I helped them with, like, plugging their stuff in and, like, some other stuff, like putting the shade down in the lights and stuff like that. Like, I didn't have a whole lot of interaction with them. But anyway, I just looked up. I really thought I was just gonna say, like, oh, you know, just have a seat, you know. But then I was like, no, no, I want to stay in my aisle seat. So anyway, I felt bad for a minute, but I got over it. And anyway, the girls were great seat mates, and they were laughing at the woman who was yelling stuff. Anyway, I don't know why I told you that, other than I think those girls needed a shout out for being so cool on a plane, not that they'll ever hear this. I guess what I want to understand is the diabetes doesn't feel like to me, like it's a huge part of your consciousness day to day, like you're taking care of it like. But what are your outcomes like? Do you know what your a 1c has been for the last year? How's your variability? Do you feel like you're putting a lot of extra effort into diabetes, or does it feel like kind of background to you? I

Tyler Hoskins 31:13
don't really know my a 1c off the top my head, my doctor always says that it's really good. Don't know if she says that to everyone, or just me,

Scott Benner 31:22
I think they say to everyone who's not dying, they're all like, you're doing great. Did you get that you're doing great? Yep, yeah, you're doing great. So if I said to you, you're a one season, the fives, the sixes, the sevens, the eights, would you know which one?

Tyler Hoskins 31:33
I would say it's like, low sixes. Okay,

Scott Benner 31:38
nice. So you don't know exactly what it is, but you know about where it is, yeah. So that's not even a thing that you're like focused. So you go to those appointments with your mom or your dad, depends on the time could be either, yeah, okay, you both your parents have a firm idea of how to help you and how to help you manage that they were they part of the teaching process, or was it all on your dad?

Tyler Hoskins 31:58
Mainly on my dad, my mom would give ideas every now and then, but she didn't grow up having type one diabetes, so yeah, she could try and help,

Scott Benner 32:09
but she's been married to a type one for a long time. I imagine he's

Tyler Hoskins 32:13
the same way I am. Like his diabetes is there. He doesn't really like it's not really a big part. It's just he manages it. It's done. He won't go out and say. It took a lot of convincing for my mom to get the follow app. He's not really public about his diabetes.

Scott Benner 32:32
Oh, wait, took him. He had to be convinced, or your mom had to be Yeah, my dad had to be convinced. Oh, and this, did this only happen once you got diabetes, yeah,

Tyler Hoskins 32:42
I think she got it on me a little bit after she got it on my dad too,

Scott Benner 32:46
gotcha, and he was like, I'm fine. Leave me alone.

Tyler Hoskins 32:50
He's always been great with his diabetes, yeah, okay. He didn't really need the monitoring,

Scott Benner 32:56
right? But it makes her feel better. Do you think? Yeah, I think maybe once she started seeing your blood sugar, she started wondering about your dad too, I bet. Yeah. It's interesting. Do you notice, like, your dad's your dad, right? You think your mom was, I'm gonna guess she was obviously upset. Didn't know that you had type one like, but like, do you think it really affected her? Have you seen it change how she is with you? Not a major amount.

Tyler Hoskins 33:23
It was kind of known that at least one of the children are gonna be diabetic eventually,

Scott Benner 33:29
because of the fam, the whole family, there's a fair amount, right? Yeah. So do you think? Have you ever talked to her about it, like, did she marry your dad, knowing I'm probably gonna have a baby with type one at some

Tyler Hoskins 33:39
point? I don't know. Interesting question. You would probably know that one of the children's probably going to be type one, since her dad and some of her families are also diabetic,

Scott Benner 33:51
yeah, type two, type only, type two on her side.

Tyler Hoskins 33:55
Her dad's type one, most is type two. Oh, her

Scott Benner 33:59
dad's type one. Your dad's type one. There's type one on your dad's side. Yeah, one of you is definitely getting it. I mean, not definitely, but

Tyler Hoskins 34:06
you know what I mean, like the odds, a lot of jeans in my family for diabetes. Yeah, a lot

Scott Benner 34:09
of holes in your jeans. You know what I mean, yeah, you can buy them that way. Now, did you know that pre distressed? They call it? You wouldn't wear jeans with a hole in it, right on purpose.

Tyler Hoskins 34:19
The only holes in my jeans are if they do end up getting ripped,

Scott Benner 34:23
then they just stay there. Yeah, I hear you. You think your sister feels it's gonna sound crazy for a minute. Maybe think your sister feels left out.

Tyler Hoskins 34:32
She seemed happy that she wasn't gonna be diabetic when we did the trial net.

Scott Benner 34:40
But you weren't sad, not really. Tyler, are you easy to get along with in other parts of your life? Yeah, yeah. You think that's just natural for you. It's not a thing you're trying to do. Yeah. It's interesting. You told me in your intake form that you want to talk about hunting with type one. What are the challenges? How do you handle it when I'm sitting there hunting, or, I guess, anywhere quiet, but mainly hunting. Back when I was on the Omnipod, I was always terrified that it was just gonna start beeping. You don't want the deer to hear I don't want the deer to hear that. Oh, dear. Don't hear. Isn't that interesting? Like, you're like, I need to talk about, like, hunting with diabetes. And it's not about like I got low walking through the woods where it was tough, carrying snacks, or I didn't like testing my blood sugar when it was cold, it was like, just didn't want the game to get scared off by the beeping. Dude, you are chill as hell. You know that about yourself. You You're really relaxed, man, I'd like to be as relaxed as you are. You dating? Any, any people on your on the on the horizon there?

Tyler Hoskins 35:45
Not right now. Are you interested? I'm waiting until I can drive. How do you think that changes things? Don't want my parents to drive me to my date.

Scott Benner 35:53
It'll definitely change it. So when I say to you, are you dating? And you think, no, I'm not. But are you interested? You picture a person? Not really. No. Hasn't been one or two that you've been like, maybe this one.

Tyler Hoskins 36:07
I've had a couple like ideas, but not really. You ever talk to them? Yeah, I'm friends with quite a few, but quite a few, well, not quite a few.

Scott Benner 36:16
You're bragging, Tyler, it's okay. Quite a few. They're everywhere, just waiting for you to get a driver's license. Probably you think they're thinking of the same thing, like that guy starts driving and I'm I'm getting into this. No, no, Are you tall? Your voice makes me feel like you're tall. I'm like, 510 511 Yeah, you think you'll be taller than that? Every doctor

Tyler Hoskins 36:39
has told me a different thing. Some of them are saying, I'm going to keep growing. Some of them say, I stopped growing. We can

Scott Benner 36:45
figure it out. How tall is your father? Six foot and your mom is your mom over five nine. She's probably about 5859 Yeah, you might not get much taller. Sorry, man, this is tall enough. You're not trying to play basketball or hit a baseball or something like that. You'll be all right. Six foot is a good tight I bet you're taller than most people you meet, right? Yeah, for the most part, yeah, it's interesting, isn't it? I'm not that tall, and I'm five nine, and most of the people I meet I'm taller than, which freaks me out, because as soon as somebody, as soon as I meet somebody like, Who's taller, taller than me, I feel like a child, you know? I mean, like somebody six two walks in. I'm like, Oh, my God, I'm so short, but then most of my life, I'm taller than everybody else. It's interesting. I don't know. Do you care how tall you are? Not really. Ah, may I go over a scenario that we were talking about in my house the other day, sure, I said to the family, what percentage of your looks would you give up to be something else? And what would that something else be so like? What else about your visage, you know what I mean, the way you look, the way you are, etc. Would you like to be more muscular, taller, slender, like, whatever, like, if there's a thing you wanted to adjust, but you could only get it by giving up 10% of your good looks. Would you do it like? You'd be 10% uglier, Tyler, but then you would be the other thing that you want. Do you want anything badly enough to give that away? I would say no. Everyone said, No, really? Yeah, I have to tell you, man, I would for height. I don't know why. I wish I was a little taller. And I'm not handsome enough to give away 10% 10% would hurt me taller. I'm not gonna. I'm not gonna lie to you. I'd be in a situation. You know what? I mean, yeah, you feel like that too. You feel like you can't, you can't afford to 10% Yeah. Who do you think could, this was the rest of our conversation. Like, what famous person could, like, lose 10% of their like, like, I don't know. Face value, I don't know, I don't know where to put this, because it's so stupid. Who could lose 10% and still be like, like, rock solid, still handsome. I always say Brad Pitt. I think Brad Pitt's a handsome man. Brad Pitt definitely could, right? Brad Pitt, yeah, dinner. Matt Damon, I bet he could. Yeah, I think heavier. Matt Damon, can't afford it. What do you think of that? Probably not these things you've ever thought of or No, no, not really, though. What do you think about when you're sitting around talking with your family and saying stupid to each other? It's

Tyler Hoskins 39:17
mainly just my sister staying random stuff, like yesterday, she brought up about primary colors, like, how you need the primary colors to make all the other colors, but she was trying to figure out how you get primary colors,

Scott Benner 39:33
like, what makes them? Yeah, well, you're making a point. I mean, I don't know how anything works, so that also isn't it strange, know that, um, different people see colors differently. Isn't that crazy?

Tyler Hoskins 39:47
I've actually seen this so I see less shades of like, red and less shades of blue than other people.

Scott Benner 39:56
No kidding, like somebody says you This is like dark red, and you go, No, it's not.

Tyler Hoskins 40:00
In art class one time, we were blending reds together, and to me, it looked like just red and then light red. Everybody else

Scott Benner 40:11
saw contrast and like, different everything, right? Like it just they looked much different to them, more like a rainbow of reds. Yeah, and you only saw two. Well, that's interesting, isn't it? Do you wear glasses? I do interesting your whole life, not my whole life, not your whole life. I started around like fifth grade. I think when you start dating, do you think it's going to be difficult to explain type one to people, do you think you won't even bother like, how do you imagine? Like, you know, I mean, like, I didn't ask you, but girls or boys? What's your preference? Girls? All right, so you see a girl and you're like, right on this is the one I'm gonna focus all of Tyler's energy on trying to get this girl to go to a movie with me, or whatever it is you kids do now, okay? And like, you saunter up to her and you're like, Listen, I got my license now, and I'm thinking, maybe you and I would you be interested? Like, whatever you end up saying. Assumption is, the girl knows you have diabetes already, right? Most people I talk to are, you know, right? And so she says, yes, we want to go. Awesome. We're making a plan. Is it more like, does it turn into hunting? Do you start thinking like, I don't want this thing beeping while I'm technically you are hunting now you're trying to get this girl to like your you know what I mean? Try to try to get her to like you would. Do you think you'd go to efforts to quiet the diabetes? Do you see that you would maybe ignore it a little bit in front of her to keep it from being focused? Or do you think you wouldn't care and you just do what you need to do. I

Tyler Hoskins 41:43
wouldn't really ignore it, but if it were going to, like, a movie theater, I would be a little conscience of it, beeping, yeah, but like, if we're out to dinner or something, it can be not a really big issue there. So

Scott Benner 41:56
you're not worried that she hears it, this pretend girl we're making up. You're not worried that she hears it. You'd be just worried that you wouldn't want it to just like in any other situation. You wouldn't want it to bother people. Yeah, okay, so you're not embarrassed at all about your diabetes. No, right? And this girl pre dates in says, Hey, listen, you're cool and all. And I enjoyed the Superman movie we saw, you know, like, or whatever, and that's all good, but diabetes things freaking me out. I can't do this anymore. Do you think you'd be like, Oh, then you don't like me if you don't like that and right on. Or do you think it would hurt you if somebody said that to

Tyler Hoskins 42:33
you? I had a friend who started out like that, like he's terrified of needles, so he's better now, but one time I got him to put on one of my G sixes that absolutely terrified him. But after that, he seemed less How do I say this? Less scared of needles.

Scott Benner 42:59
Okay, Tyler, I might not have asked my question. Well, if that was your answer, so let me try one more time. If you got rejected for having diabetes, do you think that would hurt your feelings?

Tyler Hoskins 43:08
I would say probably, since diabetes is a part of me, if you get me, you get diabetes with it, I'm not gonna like hide it because of you, but

Scott Benner 43:23
it's not you, though, like you, you have a distinction between the two of you. So if some, if some, like person was just like, Look, I'm not doing diabetes with a boyfriend. So no, I'm sure you'd be disappointed, yeah, but I don't know that, like I'm wondering, and I think your answer tells me your answer, which is, I think you'd be disappointed, but I don't think you'd be hurt by it. And if, if so, not for long, you have a really so you have a healthy outlook about yourself, which is, just tell us all how your parents raised you with that. Like, because I we'd all like to bottle that and give it to our children, like, like, why are you confident?

Tyler Hoskins 43:58
I guess my dad, he's just been diabetic ever since I was around way before that, and his diabetes has just always been there, right? Like, if I had a question about it, he'd answer it, but he wouldn't go and, like, try and hide it, I

Scott Benner 44:16
guess. Yeah, and he bagged your mom, right? So you gotta figure somebody out there is okay with it, yeah, do you ever think of it that way that they dated at some point? I don't like thinking of that. Yeah, I wouldn't want to, either I'm with you, but he did, like, right? Like, you know, your parents were out there, or maybe your dad bagged your mom, or your mom bagged your dad. I don't know how it went, but do you want to be married? Do you think, or is that a thing you don't think about? I mean, you're young. If you never thought about it, I wouldn't be

Tyler Hoskins 44:41
surprised. I would say I want to get married someday. Okay, you want to make a little

Scott Benner 44:46
baby with diabetes, because you're probably well on your way to it already. Do you? Have you ever thought about that?

Tyler Hoskins 44:51
That is one thing I'm scared of, is having a child with diabetes when I was diagnosed, I would be fine with having a child that was diagnosed. Around that age. My cousin, she was diagnosed when she was four.

Scott Benner 45:05
I feel like that would be hard to deal with. Changed my life. It's difficult. So, yeah, my daughter was two. She's 21 now that crazy. It's crazy to me. It's not crazy to you. Just just gave me a chill, though, if you had actual experience at the age, you feel like that would be okay, but anything that maybe would happen before you knew how to do this, you think that would scare you a

Tyler Hoskins 45:34
little bit like the child having experience with like in an understanding of diabetes, I think would really help.

Scott Benner 45:43
Yeah, yeah, I think so too. When you imagine a family, how many kids do you have? Like, 230, you better fix a lot of you better be fixing those airplanes with both hands. You're gonna get three. You think you'll be alright with the heat in Florida and the humidity. Past

Tyler Hoskins 45:57
couple weeks, it's actually been hotter here than it is where my brother is. This

Scott Benner 46:02
is the weirdest summer, isn't it? It is, yeah, so you're getting hot where you're at, yeah, we're getting rain. Like, it won't stop raining here. It won't rain here. No, I would love for you to have some because it doesn't usually rain here this much. And it's starting to get, like, a bit of a bummer. My son's like, you know, tries to go out and do something active on the weekends, on Saturday, and he's like, I can't even get outside. He's like, it won't stop pouring and like, thunder and lightning for days and days last week I was gone. I went on a cruise with a bunch of listeners. I was gone, and it was like, 105 degrees or something at home. And like, that doesn't happen in June where I live. You know what I mean? I'm telling you, I keep telling my wife, like, this is going to be like a weird weather summer. This is going to be one that's just oddly different than than others for a while. So it's dry and hot where you are, yeah, interesting. All right. You have any pets? I have one dog. We have like, six goats and four rabbits and handful of Barn Cats. So are you on a farm? I'd consider it a farm. Yeah. Do they? Do you guys work it? Is it like, does it make money? Not really. No. Is it supposed to and it doesn't. Or it's just like, you have a nice piece of property, and so you have a barn up on it, and you got some goats. I

Tyler Hoskins 47:24
think we were up to 30 goats at one point. That was when we were more in the money making side of it. But now we're just there to show the goats. We have two of them that are ours. The rest of them are somebody else's that we're just putting in our pasture, feeding them. And we get to show them

Scott Benner 47:41
somebody is boarding their goat with you. You're like an Airbnb for goats. Yeah, no kidding. When you had a ton of them, how do you make money with goats? You sell them,

Tyler Hoskins 47:50
yeah. So you would go and breed them, and then you would tell them, what's a goat worth? You know, we bought our two for, I think it was 300 a piece, and they were young, and the last ones left, and

Scott Benner 48:07
then you make a baby goat, I guess Tyler. I'm trying to ask you, what do you do with a goat? Do you milk it? Do you ride it? Do you I know you don't ride it. I'm just saying like

Tyler Hoskins 48:16
you don't milk some of them. You can, but our breed is more meat. Oh, oh, no kidding, people eat goat, yeah, oh, I didn't know that. How's it taste? It's like beef, but a little bit sweeter, really. Yeah,

Scott Benner 48:33
no, this at all. What kind of go there? Like a, I almost said a brand Tyler. I almost said a brand of goat. That's definitely not the right thing to say. But like, is there a type? Is there a certain type that are better for eating than others?

Tyler Hoskins 48:46
Yeah, so there's meat and there's dairy. That is, like, the most broad classifications of goats you can get. So you have the meat ones, which are they don't produce milk all the time. Only when they have young, when they have kids, is what they're called, yeah. And those ones, you can just eat the meat, okay. But then the dairy ones, those ones are used for their milk. If you've ever seen a dairy goat, they all look severely underfed

Scott Benner 49:17
because they're not okay, because they're always produced in the milk, and it takes a lot out of them. I guess they just don't have all that meat on them, a lot of meat on them. Okay, how often do you eat goat Do you think

Tyler Hoskins 49:29
right now? Not as much. But before, like goat tacos, those are really

Scott Benner 49:35
good. No kidding. Am I gonna call this episode goat tacos? Maybe? Well, that's interesting. I appreciate. Oh, by the way, there's some work being done on my done in my house, and the idea of being quiet, I don't think the guy completely understands. So you might hear some banging. Can you hear that? Yeah, yeah. He is nowhere near this room. Interesting. Sorry, though. Hold on a second. I have more goat questions, and I have another question too, but. Right? So you breed the goats. People buy the goats. Do they do people butcher them themselves? Or do you sell them? Butchers who sell the meat? We

Tyler Hoskins 50:08
don't sell the butchers, but we'll sell the people. Sometimes they'll give them to butchers. Sometimes they'll butcher them themselves. Sometimes they'll just raise them and show them,

Scott Benner 50:17
okay? And then they maybe breed their own goats and then sell theirs? Yeah, no kidding. I didn't know any of this was happening. Interesting. What's your father do for a living?

Tyler Hoskins 50:27
He started out as a paramedic, and then he moved to the dispatch side. Ended up being head of dispatch for quite a few years, and now he works at home and sells software to EMS companies. Okay? And your mom, does she have a job too? Yeah, she does ultrasounds for an OBGYN office. Oh,

Scott Benner 50:49
neat. That's cool. She gets to see baby, little babies, before they're born. Oh, that's nice. And you're gonna abandon them and go to Florida. Probably your sister's younger, right? She's older. Oh, she's older. Oh, you're the youngest, yep. Oh, no kidding. Oh, wow, are you? Are you sad that you might move away?

Tyler Hoskins 51:09
My mom's in Florida quite a bit, just because she has a house down there that she can go to.

Scott Benner 51:14
No kidding, everybody's living a better life than me, Tyler, that's what I'm hearing. Okay, so your mom's there pretty frequently. Yeah, all right. Will you live in that house when you go

Tyler Hoskins 51:23
down? He's offered me a room there whenever I want.

Scott Benner 51:28
Okay, nice. This is lovely. How's the learning to drive going? And do you worry about your diabetes while you're driving?

Tyler Hoskins 51:34
Driving? Now, I'm better at it than I was when I started out. Makes sense. I've really only had two encounters with diabetes while driving, and both the times my parents, they have to be with me when I'm driving, so they both have the follow up on me, so they noticed I was going low. I always keep glucose tabs in my car, yeah, so I just kept driving, and I wasn't at the point where I was low enough where I felt like I couldn't drive. Yeah, I was more at the point where I started getting just a little shaky. So I just ate some glucose tabs while driving, and I was fine. You

Scott Benner 52:15
were okay. Okay. Art doesn't get low very often at all, actually, but she does like everybody else. And the other day she texted me, it was like later at night, and we were all kind of just settling into bed. We settled in, I think she started to get a little lower. She left and went to the kitchen, and I got a text that said, Hey, can you come help me? I must be about to get low, because I swear I just saw a full on person walk past me, and there's no one here, and I'm freaked out. I was wondering if you would come down, and I was like, okay, Has that ever happened to you? Do you ever see things? No, not really. She never has either. It was a new thing. She never said that before. Was there actually a person? Or did she just see something? No, she didn't. There was no person. So I could read you the text, but hold on a second, then I have one last question for you. Let me see. Says, I fear my blood sugar is low because I swear I just saw a whole human being walk past me, and there's not a soul here. And now I'm freaked out. So it took me a second to get to her. She kept texting me, hey, I'm downstairs. In case you were wondering where I was, like, that kind of thing. Like, she's like, she was really, like, you come to me, please. Like, like, she got a little freaked out for a second. Anyway, my last question is, how do you end up on a podcast? Like, about this. Like, do you listen? Did your mom say hey, you should go on? Like, how do you end up being a guest?

Tyler Hoskins 53:39
So my mom started out listening to your podcast, and then I started listening to it, and it was at the end of one of your videos, and you said that if you want to apply, just apply here. So yeah, I decided, let's see if he'll let me in. Awesome. What made you want to come share mainly my unique experience with getting diagnosed. I've noticed, like a lot of people, their diagnosis isn't as fun as mine. I guess their diagnosis is just them ending up in the hospital. I can't believe

Scott Benner 54:12
you called it fun. Tyler, you have a unique personality. Like, you're very, like, just upbeat about things. It's interesting. Like, I mean, you don't know that about yourself, because it's how you are. But like no one's ever said to me, I don't believe you know, I have a fun diagnosis story. So what I take away from this, more than anything, is that you're not burdened by this at all, really. Nope, yeah. Well, that's awesome. I hope that stays like that for you forever. You know, that's really interesting, and I'm happy that you came on to share, because, you know, we don't get as many kids. I know you probably feel older than like, it probably feels weird me calling you a kid, especially after we just talked about eating them. But still, like, you know, I really do appreciate you doing this, and I do hope people hear your story and and take something from it, and I hope what they take from it is, like, your attitude, honestly. Yeah, look at you. You're not scared to move away. You're not scared to go to the heat. You're active, not active. Swim, don't care. Switched pumps. All casual. No, no. Like, oh no. I, you know how many people come on and, like, I switched pumps and it was horrible. Or, like, I want to do something, but I can't. Or, like, it's you just, you know, dude, good for you, man. I hope this lasts for you forever. I think it's going to serve you well in life. How about you? Where do you think you're going to be? Is it hard to picture your life? I know I said it was my last question, but at your age, is it hard to picture your life big, like time wise, or do you just kind of think about today, tomorrow and maybe a little ahead?

Tyler Hoskins 55:37
The hard thing is, I don't really know what I want to do. I have ideas, but I don't really know what I'm going to do. Yeah,

Scott Benner 55:47
well, I love the idea of the internship. It'll tell you, like, this is a thing I enjoyed or I didn't. Yeah, I'll tell you I've sent two kids off to college, and I think one of the craziest things we do, maybe as a society, is to ask a junior in high school to start thinking about what they want to do in college, if they're gonna go to college, and if not, what do you wanna do for a living? Who would know the answer to that question?

Tyler Hoskins 56:11
My school started making me do writing assignments about what I wanted to do when I was in sixth grade.

Scott Benner 56:18
Awesome. Yeah. I bet sixth grade you probably wanted to be a fireman, having to think about it's a great idea. Like, I like you thinking about it. I'm saying making a decision, especially if you're going away to college and you're like, hey, here's a commitment for years, a bunch of money. And, like, what happens if I get there and I'm like, this isn't right for me, or I did the wrong thing, or, you know, whatever, I want to pivot. Like, yeah, you're, you're locked in financially, you're, you're a little locked in with your time, right the way you're gonna go. I think it's, it's a good idea, man, because you can pivot easily. You know, if you come up with something like, I don't like this or I like this part of it, you can, you can move to it as you're learning. I think it's a great idea, yeah, yeah, awesome. I wonder where you'll end up be interesting. I don't think I'll be alive long enough to really find out I'm getting pretty old, but it is interesting just to see where people think they're going to go and where they end up, and do they end up there, or do they put themselves there? Is always an interesting perspective for me. But anyway, it's probably pretty boring for you. When you're 16, you're just trying to drive so you can ask a girl out. All right? Now we've talked all about it. Is there a girl in your head? Now? Not really, not really awesome. So then, if it's not one person, what is it you're looking for? Like, if I said, intelligence, kindness, looks, height, hair color, love of music, love of art. Like, what do you think's most important in a person that you'll enjoy being with

Tyler Hoskins 57:48
kindness and willingness to accept the fact that our child might be diabetic? Wow.

Scott Benner 57:55
Okay, so those are the two things that stick with you right now, kindness actually in both in both ways, it's nice, so you don't care, tall, short, thin, not thin. Red hair, black hair. None of that pops into your head. Not really interesting. All right, who's the most attractive famous person you can think of right now? Like visually attractive, Scarlet Johansson. Scarlett. Johansson, okay, all right, I'm with you. Little unique looking, right? She's curvy, right? Yeah, okay, you know she's short, right? That's okay with you. Is she super short? All actresses and actors are short. You could pick Tom Cruise up and throw him across the room if you wanted to. I knew he was short, yeah, but think about it, when he acts with what he's short when he's acting with women he's taller than them. Do you know what an apple box is? I don't. Okay, well, it's a box. Sometimes I've seen, like, pictures of Tom Cruise standing on things to act next to taller women. That interesting. Never think about that, right? All right. Scarlet, Joan, answer, so you'll be going to see Jurassic Park this week, if I can get someone to drive me, Tyler, ride one of the goats. Seriously, could you just, like, throw a saddle on it, and do you think you could handle it? I know it can't, Tyler, don't worry. I'm just kidding. Have you ever ridden a horse? I have not interesting me either. I think I'd probably die if I tried, don't you? I've

Tyler Hoskins 59:19
tried to ride a steer. I don't think that sounds smart. I couldn't get on it. Oh, did it care? This was one of our steers that we've owned since it was little. Oh, so it was kind of friendlier, a

Scott Benner 59:35
friendly steer. Yeah, gotcha. So you wanted to get on it, to steer it around, but you couldn't. Thank you. All right, that's it. I'm good. Hold on. One second for me.

I'd like to thank the ever since 365 for sponsoring this episode of The Juicebox podcast, and remind you that if you want the only sensor that gets inserted. Once a year, and not every 14 days you want the ever since CGM, ever since cgm.com/juicebox one year, one CGM. This episode of The Juicebox podcast is sponsored by the Omnipod five and at my link, omnipod.com/juicebox you can get yourself a free, what I just say, a free Omnipod five starter kit, free. Get out of here. Go click on that link, omnipod.com/juicebox check it out, terms and conditions. Apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox links in the show notes. Links@juiceboxpodcast.com touched by type one, sponsored this episode of The Juicebox podcast. Check them out at touched by type one.org. On Instagram and Facebook. Give them a follow. Go check out what they're doing. They are helping people with type one diabetes in ways you just can't imagine. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox podcast. If you're not already subscribed or following the podcast in your favorite audio app, like Spotify or Apple podcasts, please do that now. Seriously, just to hit follow or subscribe will really help the show. If you go a little further in Apple podcasts and set it up so that it downloads all new episodes. I'll be your best friend, and if you leave a five star review, ooh, I'll probably send you a Christmas card. Would you like a Christmas card? Hey, kids, listen up. You've made it to the end of the podcast. You must have enjoyed it. You know what else you might enjoy? The private Facebook group for the Juicebox podcast. I know you're thinking, Oh, Facebook, Scott, please. But no, beautiful group, wonderful people, a fantastic community. Juicebox podcast, type one diabetes on Facebook. Of course, if you have type two, are you touched by diabetes in any way? You're absolutely welcome. It's a private group, so you'll have to answer a couple of questions before you come in, but make sure you're not a bot or an evildoer. Then you're on your way. You'll be part of the family. If you've noticed that the podcast sounds better, and you're thinking like, how does that happen? What you're hearing is Rob at wrong way recording doing his magic to these files. So if you want him to do his magic to you, wrong way recording.com. You got a podcast. You want somebody to edit it. You want rob you.

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