#1848 Boggs Family

Scott and Shannon Boggs discuss her daughter's traumatic DKA diagnosis, managing Hashimoto's, the hidden burdens of diabetes service dogs, and navigating social media fame while protecting your peace.

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Omnipod
DexcomG7 15 Day Sensor
Dexcom
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Cozy Earth
US MEDGet your Diabetes Supplies
US MED
ContourEasy to Use and Highly Accurate
Contour Next
MiniMedMake everyday a better day
Minimed
TandemControl-IQ+ with AutoBolus
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Touched By Type 1
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Key Takeaways

  • Trust your intuition as a parent and advocate for a change in doctors if your child's endocrinologist dismisses consistently high blood sugars or ignores other autoimmune symptoms.
  • Type 1 diabetes is frequently accompanied by other autoimmune conditions, such as Hashimoto's or celiac disease; regular screening and paying attention to subtle signs like lethargy or skin changes is vital.
  • While a diabetes service dog can be a wonderful asset, they also require significant financial resources, continuous training, and add extra daily responsibilities that aren't ideal for every family dynamic.
  • If you build a social media following around diabetes, prioritize community connection and authenticity over algorithmic metrics to protect your peace and avoid burnout.
  • As children with T1D grow older, parents must gradually relinquish control—allowing teenagers to manage their own routines and choices fosters the lasting independence they need for adulthood.
FULL EPISODE TRANSCRIPT

Introduction and Sponsors

Scott Benner (0:00) Welcome back, friends. You are listening to the Juice Box podcast.

Shannon Boggs (0:11) My name is Shannon Boggs. I am the mom of three kids. My oldest has type one diabetes. She was diagnosed about three years ago. Over the last three years, we've been learning to navigate the highs and lows and figure life out.

Scott Benner (0:25) If you'd like to hear about diabetes management in easy to take in bits, check out the small sips. That's the series on the Juice Box podcast that listeners are talking about like it's a cheat code. These are perfect little bursts of clarity, one person said. I finally understood things I've heard a 100 times. Short, simple, and somehow exactly what I needed. People say small sips feels like someone pulling up a chair, sliding a cup across the table, and giving you one clean idea at a time. Nothing overwhelming, no fire hose of information, just steady helpful nudges that actually stick. People listen in their car, on walks, or rather actually bolus ing anytime that they need a quick shot of perspective. And the reviews, they all say the same thing. Small sips makes diabetes make sense. Search for the Juice Box podcast, small sips, wherever you get audio. Nothing you hear on the Juice Box podcast should be considered advice, medical or otherwise. Always consult a physician before making any changes to your health care plan.

Scott Benner (1:29) The episode you're about to listen to was sponsored by Touched by Type One. Go check them out right now on Facebook, Instagram, and, of course, at touchedbytype1.org. Check out that programs tab when you get to the website to see all the great things that they're doing for people living with type one diabetes. Touchedbytype1.org. I'm having an on body vibe alert. This episode of the Juice Box podcast is sponsored by Eversense three sixty five, the only one year wear CGM. That's one insertion and one CGM a year.

Scott Benner (2:04) One CGM, one year. Not every ten or fourteen days. Ever since cgm.com/juicebox. Today's episode is also sponsored by the Tandem Mobi system, which is powered by Tandem's newest algorithm, Control IQ Plus technology. Tandem Mobi has a predictive algorithm that helps prevent highs and lows and is now available for ages two and up.

Meeting Shannon and Navigating Hashimoto's

Scott Benner (2:28) Learn more and get started today at tandemdiabetes.com/juicebox.

Shannon Boggs (2:33) My name is Shannon Boggs. I am the mom of three kids. My oldest has type one diabetes. She was diagnosed about three years ago. Over the last three years, we've been learning to navigate the highs and lows and figure life out.

Scott Benner (2:48) Oh my gosh. How many you have three kids? What are their ages?

Shannon Boggs (2:51) They are 11, nine, and six.

Scott Benner (2:54) Okay. Wow. Are you a a young family? Are you, like, in your thirties or forties? Or

Shannon Boggs (2:59) Yeah. I'm 35.

Scott Benner (3:00) Look at you. Alright. Very nice. Any autoimmune in the family, or was type one the first time you heard those words?

Shannon Boggs (3:08) So we had really not we weren't really super familiar with type one. My aunt hasn't, I mean, my husband has an aunt who grew up, like, twelve hours away from him who has type one. So when she when my daughter, Raelyn, was diagnosed, they were immediately like, who has type one in your family? And I didn't know of anybody, and he was like, I have an aunt that does. So that would be Raylan's great aunt.

Scott Benner (3:31) Mhmm.

Shannon Boggs (3:32) And then we have some celiacs on both side of our family, which so far she's negative for, but she does have this last year, she was diagnosed with Hashimoto's.

Scott Benner (3:42) Your daughter was? Yeah. I like that you said celiacs, plural. I wasn't sure if you were being plural or descriptive when you said celiacs. Like, multiple celiac or people who we refer to as celiacs.

Shannon Boggs (3:54) So yeah. Yeah. I met multiple people with celiacs.

Scott Benner (3:58) You know those people,

Shannon Boggs (3:59) the celiacs. Yeah. Yep. The celiacs.

Scott Benner (4:02) What led you to think about the Hashimoto's? Was it just generalized testing that caught it, or did you see something?

Shannon Boggs (4:09) So when she was at when she was diagnosed, they immediately told me that there's other two other autoimmune diseases that usually go hand in hand. Sometimes they'll get one or two. Sometimes they'll have all three. And they tested her at diagnosis and said that she had the markers for

Scott Benner (4:24) it. Okay.

Shannon Boggs (4:25) We checked it regularly, I think, like, every six months, and it started kinda climbing up. And I guess maybe six months ago, it was high enough that they went ahead and put her on levothyroxine for it.

Scott Benner (4:37) Do you have any idea how high her TSH was when they put her on it, and were you seeing any symptoms from it?

Shannon Boggs (4:43) I think it was about I wanna say it was, like, a 12, and I started seeing flaky a lot of flaky skin on her scalp that was itchy, and she was tired and started kinda gaining weight a little rapidly.

Scott Benner (4:55) Mhmm.

Shannon Boggs (4:56) So that has gotten better. She's had to move up on dosing, and we might have to bump her up again. We're waiting to see.

Scott Benner (5:02) Well, as she grows, she's gonna need more. Yeah. Be careful of that because they'll lose sight of that sometimes. Hey. Prior to the because twelve's pretty high. So prior to that, did you see symptoms like, looking back, can you see other symptoms now before they treated for it?

Shannon Boggs (5:18) Yeah. And, you know, I wanna say when she was, like, at a four, they didn't medicate her yet. And I was starting to see and ask, and they were like, well, I don't think we need to yet, but maybe next appointment, we will. But I started kinda noticing her being a little tired.

Scott Benner (5:36) Yeah. If I was your doctor, I would've given it to you to four if you saw symptoms.

Shannon Boggs (5:40) So Yeah. And, you know, I really wasn't educated on it. I remember our we had an endocrinologist that at first didn't take much very seriously. We we had to really fight to kinda get a new new one that would listen to us better, but she would say things to me like, well, if her blood sugar goes to 400 every day after breakfast, I'm fine with that as long as it comes back down eventually. And I was like, well, I don't really like that. Like, I would really rather have her a little bit more in tight control, and she just seemed very, like, not worried about things. So when I asked about the Hashimoto's, and I was like, what what is this? What do we need to do? Should we do some stuff with diet? She was like, oh, no. It's easy. All you do is take a pill.

Scott Benner (6:21) Where'd you find this lady? A swamp? Where where did where did you

Shannon Boggs (6:24) I'm telling you. Mhmm. It was interesting. First our first two years with her was very interesting because that's who we got at diagnosis. That's just who was there, the day that we went in, and she was in DKA. So then they kept telling me I couldn't switch. You are you're stuck with whoever you're with. And I was like, what? This can't be right.

Scott Benner (6:41) Is she older or younger? Or what was

Shannon Boggs (6:44) I would say she was, like, mid forties, but she was pregnant with her first baby. And she then she went out on a long maternity leave, and she went out early. So I just feel like her focus wasn't really at work at the time.

Scott Benner (6:56) She's like, Shannon, listen. I hear you have questions, but I just bought a house. So, I I don't I gotta go.

Shannon Boggs (7:03) She was crazy.

Scott Benner (7:04) The 4 hundreds, as long as it comes back down, I mean, that's fat. Was she was a a pediatric endocrinologist?

Shannon Boggs (7:12) Yes. I had when I tell you what I had to jump through to get to a new endocrinologist in the same office, and we're very happy now Yeah. I mean, it took months and months. And I was like, you and we don't have another children's hospital within, like, a four hour radius

Scott Benner (7:27) of us. Yeah. Yeah.

Shannon Boggs (7:28) Because I would have just left.

Scott Benner (7:30) Was the office surprised when you said it to them, or were they like, oh, no. We know? Like, I wonder what that

Shannon Boggs (7:35) was like. They just they just kept saying that they were shorthanded. Nobody was taking new patients, and I had to stick it out with her. And I was like, no. This is not right. Like, I have to be able to do something else. She needs a different Yeah. Doctor.

Scott Benner (7:47) Yeah. She shows up every day. It's not a good reason for me to put my child's care on her. Yeah. Tell me again, your daughter is how old when she was diagnosed?

Shannon Boggs (7:55) She was seven.

Scott Benner (7:55) Seven. Okay. So, yeah, like, you know, maybe we wanna help her. Yeah. Well, what kind of direction did you get about the diabetes then? If that was, like, did they give you tech? Did you have to ask for it? Did they teach you how to use it?

A Scary DKA Diagnosis Story

Shannon Boggs (8:08) That was a mess. So we went in on a Friday. Our diagnosis story alone was kinda pretty traumatic, and we had no idea. Like, diabetes was not on our radar. Yeah. We just we thought she was sick with a virus, and it escalated pretty quickly. And I just knew something wasn't right. Immediately, I'm just gonna go through the little the little steps of our diagnosis. So she woke up. Then on Wednesday, she was doing double backflips in gymnastics class, and she was fine. On Thursday, she was a little tired and didn't wanna go to school. And I remember thinking, like, maybe we're overdoing it with these gymnastics classes. Maybe because we had a long drive, we're getting home late at night, and she was like, no. I really wanna go to school. Well, on Thursday, they called me by lunchtime and said that she had a sore throat. So I'm like, okay. Pick her up. She looks very tired, but says she's okay. I'm taking pictures of her throat, like, sending it to the pediatrician. Do you think this is, like, strep throat? Do you think I should have her swabbed? And she's like, it looks viral to me. She went to bed that night and was drinking she was drinking water and ate, like, a little bit of soup but didn't eat much. And the next morning, she threw up.

Scott Benner (9:18) Well,

Shannon Boggs (9:20) her friend that she was riding to gymnastics with had the exact same symptoms the week before. Oh. So that mom and I are chatting, and she's like, oh, it sounds like the same thing my kid had. I'm like, okay. So I let it ride. That was, like, 5AM when she threw up. And around lunchtime, I was like, something's not right. I would go in her room to check on her. Her eyes were, like, open, but she was sleeping. And she would talk to me, but it was very, like, just

Scott Benner (9:46) unnerving? Like yeah. Like, she

Shannon Boggs (9:49) wasn't I it took me a lot to get her attention.

Scott Benner (9:51) Yeah.

Shannon Boggs (9:51) So we live on the Eastern Shore Of Virginia. It's like a little peninsula. We have to drive over an 18 mile long bridge to get to the children's hospital, and it's an hour and a half away.

Scott Benner (10:01) Did you go to King's Daughters? Yeah. Yes. That's where Arden was diagnosed. No way.

Shannon Boggs (10:05) I have no idea. Oh, okay.

Scott Benner (10:07) We were on vacation in, Virginia Beach when she was diagnosed.

Shannon Boggs (10:10) Oh, wow. Yeah. So my husband used to work at that bridge, the virgin the one that I'm talking about. And the day that this happened, we had a nor'easter, and the bridge closes for weather like that. Mhmm. So I was waiting for my pediatrician to call me back. I got almost to the bridge, which is an hour from my house, and they were saying that the bridge was closing. So my pediatrician was like, if this doesn't work, I want you to turn around and drive to Maryland, which would have been three hours the opposite way. Jeez. We have a little local hospital, but they don't they definitely don't have endocrinology where we're at and not for pediatrics. So she knew that they I think she knew by that point what was going on. Because when I put Raelyn in the bath that day after she threw up, I was looking at her, and I said, she looks like she lost weight. So I weighed her, and I realized that she had lost eight pounds.

Scott Benner (10:57) Oh gosh.

Shannon Boggs (10:58) And I was like, and you know what? It's gradual. Like, you don't see it when you're around them every day.

Scott Benner (11:02) Yeah.

Shannon Boggs (11:03) So when we we finally got to the bridge, they let us across because they knew who my husband was. There was, like, water splashing over the bridge. And we finally got to north, like well, when we were on the bridge, she started with the labored breathing. And I'm looking back like, what is happening? Now it's got she was throwing up. Now this is, like, respiratory? And, I mean, we were really scared. We just didn't know. We could barely wake her up at that point. Well, the whole city of Norfolk was flooded. We could not get our car through the water. All the streets were just flooded.

Scott Benner (11:34) Okay.

Shannon Boggs (11:35) So I was like, what are we gonna do? And he's like, maybe I can park at this gas station. I'll put her on my shoulder, and we're just gonna run and just try to have to get there that way. He was like, hold on. I knew one more route, and he went that route. We were able to get in the parking garage. So we walked in and realized that neither one of us even had our wallets. My wallet had fallen out in my purse in the driveway. We had no insurance card. So we walk in, and I explained to them. I think the only thing I said to them was my daughter's throwing up, and she's lost eight pounds. So they immediately take us back to triage. And when they put the pulse ox on her, I noticed that her fingernails were turning blue. And I I said it to the nurse. I was like, are her fingernails blue? And she was like, yeah. I was just looking at that. So we go back to the waiting room, and it was probably 20 people in the waiting room. All of sudden, the doors opened up. They called us back, and they were flocked around us, doctors and nurses. Like and at this point, she was over my husband's shoulders, and she was pretty much unconscious. And they were just screaming, she's in DKA. She's in DKA. And we're looking at each other. We we were like, what is DKA?

Scott Benner (12:44) Yeah.

Shannon Boggs (12:45) And the doctor looked at my husband and was like, I'm pretty sure she's a type one diabetic. I'm gonna have to run some more tests. And that's when they were like, do you guys have any other diabetes in your family? So we were there on a Friday. So all of the the staff members for endocrinology are off for the weekend. So they had the nurses on can't well, we were in ICU for a while because she had to we had to wait for her blood sugar to come down. And that was scary because they had her on the insulin drip, and I remember them saying, like, we have to do it slow because we could you know, it can cause brain damage if you do it too fast. And I just remember, like, we just she just wasn't waking up. Like, it seemed like so long. I guess it was, a day and a half. And when she finally came to, she didn't act right. Like, she didn't act like her same self with her personality, which, obviously, that's a lot to take in.

Scott Benner (13:34) Yeah. But nothing cool happened like she could speak another language or something like that. Right?

Navigating the First Few Months

Scott Benner (13:39) When you think of a CGM and all the good that it brings in your life, is the first thing you think about, I love that I have to change it all the time? I love the warm up period every time I have to change it. I love that when I bump into a door frame, sometimes it gets ripped off. I love that the adhesive kinda gets mushy sometimes when I sweat and falls off. No. These are not the things that you love about a CGM. Today's episode of the Juice Box podcast is sponsored by the Eversense three sixty five, the only CGM that you only have to put on once a year and the only CGM that won't give you any of those problems. The Eversense three sixty five is the only one year CGM designed to minimize device frustration. It has exceptional accuracy for one year with almost no false alarms from compression lows while you're sleeping. You can manage your diabetes instead of your CGM with the Eversense three sixty five. Learn more and get started today at eversincecgm.com/juicebox. One year, one CGM.

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Shannon Boggs (15:43) Yeah. No. No. So the nurses on that floor, when we went to the the second the step down unit, they taught us everything. And on Monday morning, they were like, okay. We've got a meeting with the diabetic educator, and we're gonna go ahead and release you. They were like, you guys are doing great. You guys are like the poster parents of type one diabetes, and you're gonna do fine. And meanwhile, we felt like we were taking a newborn home that we had never, you know, that we had no idea how to take care of. They didn't send us with a Dexcom. No talk of an insulin pump or anything like that. But a Dexcom, I was really wanting. And, I mean, I'm just I just remember looking up things online as we're laying in the room that weekend at the hospital, like, for support, and that's how I found your page. And I started listening to the Juice Box podcast, and I joined the Facebook group and, you know, just found other moms that I was like, okay. There's other people out here that are going through this and that have done this. And I remember just looking for inspiration that, like, it was gonna be okay.

Scott Benner (16:44) Yeah. Because that that half assed bull they gave you in the hospital, you're doing great, that wasn't taken. Right?

Shannon Boggs (16:49) No. It wasn't. And so two weeks went by. They said, I want you to wake every two hours overnight and check her blood sugar. Mhmm. And I thought I was gonna go off the deep end. I wasn't sleeping. I was worried to death. I was terrified. I had two kids younger than her that I was caring for. I remember calling my insurance.

Scott Benner (17:07) Your youngest would have been, like, three. Right?

Shannon Boggs (17:09) Yeah.

Scott Benner (17:10) Yeah. Okay.

Shannon Boggs (17:11) Yep. I remember calling my insurance company, and they're like, yeah. Like, we'll cover a Dexcom. I don't know why they won't let you just have a Dexcom. And I called them, and I was like, guys, it's been two weeks. Can we get a Dexcom now? Like, I I understand that you want us to learn things the old school way, but I feel like after two weeks, we figured that out, and I'm ready to be able to sleep and just feel a little bit more comfortable. So we kinda had to fight fight to get it, but we did, And that was definitely a huge relief.

Scott Benner (17:37) And you figured out that kind of stuff online, like what you needed?

Shannon Boggs (17:41) Yeah. Oh, yeah.

Scott Benner (17:42) About a CGM and everything. I was just gonna say, if they didn't mention it to you, like, where else do

Shannon Boggs (17:45) you know? No. No. They didn't.

Scott Benner (17:47) There any chance was doctor Satton Smith there? Do you know that name?

Shannon Boggs (17:50) So she had just retired Oh. I think. I heard really great things. Is that who diagnosed Arden?

Scott Benner (17:56) Yeah. Yeah. She was the night we went home, they kept her for I think they kept Arden, like, four or five days. Yeah. And then that that night, we're like, in a rental house, like, you know, I think I tested Arden's blood sugar at, like, four in the morning or something, and I thought, like I'm like, she needs insulin, but I didn't know. And it was like Yeah. Yeah. And so I just she gave me her number. She said, could call I, like, woke her up in the middle of the night. And I was like Oh. I just tested her blood sugar, and it was this. Do you think I should give her insulin? And she was like, yeah. I I think you can. And I was like, are you sure? She's like, I mean, I guess. And I was like, okay. But she was really lovely. I heard she just retired. I wondered if you caught her or not.

Shannon Boggs (18:33) Yeah. No. We didn't. Yeah. But, man, I mean, I've called numerous people in those beginning days, parents or or people living with diabetes. I had a few client. I'm a hairstylist, so I had a few clients that, had type one, and I remember just them answering my phone calls late when I was scared. And I just will never forget those people that were there for me in the beginning for sure.

Scott Benner (18:55) Hey. Before we move forward, I just have to know where I'm gonna wander the whole time we're talking. How does your husband work on a bridge? What does that mean?

Shannon Boggs (19:02) So the bridge was he doesn't work there anymore, but, it's 18 miles long, and it's a privately owned bridge. So he was law enforcement there.

Scott Benner (19:10) Okay.

Shannon Boggs (19:10) But they do before he was law enforcement, he drove the rollback, and he dealt with, like, you know, broken down vehicles. They also do drive acrosses because they're believe it or not, there's a ton of people that are terrified to drive across. So he would drive their car across while they would talk talk to him in a passenger seat.

Scott Benner (19:29) No kidding. Well, that's Yeah. Oh, because so, like, the bridge is almost like its own little city then.

Shannon Boggs (19:34) Yep. And they're you you know, they have people taking tolls, so he would have to relieve the toll collectors for their, like, lunch breaks. He would take toll for a little while and stuff like that.

Scott Benner (19:41) That's how long did he do that for?

Shannon Boggs (19:44) He was there for thirteen years.

Scott Benner (19:46) No kidding. That's really kind of interesting.

Shannon Boggs (19:48) Yeah. It's funny how it all works because it was a really good job. It paid pretty well. They have good insurance, and it's always it's a lot of people, once they go there, they stay until they retire.

Scott Benner (19:59) Mhmm.

Shannon Boggs (19:59) But the hours were really hard. He worked twelve hour shifts. It was an hour away from our house. So, you know, it was, a fourteen hour day.

Scott Benner (20:07) Yeah.

Shannon Boggs (20:07) And then he would work a month straight of overnights. And I'm home trying to keep these three kids quiet so he can sleep during the day.

Scott Benner (20:14) Oh, yeah. Yeah.

Shannon Boggs (20:15) You know, it was a mess, but he ended up with another job. And the new job he took in April, Raylan was diagnosed in September, as a program that covers a 100% of her diabetic stuff. So we don't have to pay out of pocket for anything now.

Scott Benner (20:30) Oh, that's wonderful.

Shannon Boggs (20:31) And it was like, man, that was really a blessing that he took that job.

Scott Benner (20:34) Yeah. You remind me. I have to make a copay on Ardent's pumps. I'm gonna write that down. Oh. I got an email today, and I've I've ignored it so far. You settle in, I imagine, as time kinda, like, goes on, you get the CGM that was, I'm I imagine very valuable. What's the next step, and how do you how do you recall, like, the first six, eight months of diabetes? Do you do you feel like you were like, did you have it like they told you, or did it not feel that way?

Shannon Boggs (21:00) I think that, you know, after about that time, we started feeling more comfortable. I remember she was diagnosed September 30, so Halloween was the next month. And I was like, what are we gonna do? Do we let her have candy? Do we let her trick or treat? You know, all those little things that I stress that now seem so little because you're used to it.

Scott Benner (21:18) Yeah.

Shannon Boggs (21:20) But I just remember all the firsts trying to navigate her playing sports for the first time and going to the school. And, you know, we don't have a school that at the time, they didn't monitor blood sugar. I had to watch my phone all day and call if something was wrong and then get them to go get her. Since then, last year, she and I went to the Virginia assembly with the follow t one b's that help, like, put laws in place for diabetic.

Scott Benner (21:45) Mhmm.

Shannon Boggs (21:46) And we were able to pass a bill that now her nurses can finally follow her blood sugars after three years, and they see it right in the office, and they can go get her if she's high or low.

Scott Benner (21:57) You had to pass the law so somebody could use follow?

Shannon Boggs (22:00) Right. Yeah. It wasn't a thing in Virginia until about maybe it was right before Christmas break when they finally were allowed to do it.

Scott Benner (22:06) Yeah. I remember right as Arden was getting into school, our governor passed the law that kids could give themselves insulin in their classrooms, which was a big deal. At back Yeah. Back then, like, you couldn't. You had to leave the room and go to the doc to the nurse's office. And I I look back now, and I think of how much that saved us over the years. Oh, yeah. Just being able to do insulin in the classroom.

Shannon Boggs (22:29) I mean, even last year or the the second year she was diagnosed, she got tired of wanting to go to the nurse just to treat a low blood sugar. They would make her go in there to treat a low. She'd have to walk all the way down the halls and in there. And I had to sign, like, paperworks that they weren't liable if she were to treat her own lows in the classroom because she wanted to be able to have her own snacks at her desk and just Yeah. You know, drink a juice and keep on working.

Scott Benner (22:54) Right.

Shannon Boggs (22:54) And she's like, she loves to be able to do that. She's very independent now.

Scott Benner (22:58) How is she doing with all this? Like, was it a big transformation for her? Did she accept it?

Shannon Boggs (23:03) She says things still like, I just you know, I remember that was before I had diabetes, and she'll say things like that. But she does pretty well. We're not super restrictive with her. We're bold with insulin like we learned, you know, from you guys.

Scott Benner (23:17) Okay.

Shannon Boggs (23:17) And she does pretty well. This this summer was a turning point. She wanted to go to a camp. She went to diabetes camp the year before, but this year, she wanted to go to a camp that was not a diabetes camp. It was just a regular old camp. They don't even have a nurse, and they don't have good cell phone service. And the year before, I wouldn't let her go. And this past summer, I was like, alright. We're gonna do it. We're gonna give it a try. And she did really well.

Scott Benner (23:45) Awesome.

Shannon Boggs (23:46) Yeah. She it was it was not very restful for us because there was a lot of times where we couldn't see her numbers at all, and I just had to hope and trust that somebody in her cabin, especially overnight, would wake up and hear it. I didn't worry about it during the day because I knew, like, during the day, she could feel her lows, and she's got it. But the night times were hard, and she but she did great. She's gonna go back this year. So Oh,

Scott Benner (24:08) that's so

Shannon Boggs (24:09) good. Good for her.

Scott Benner (24:10) What pump is she using?

Shannon Boggs (24:12) She's on the tandem Moby.

Scott Benner (24:13) The Moby. Okay. Is she liking that?

Shannon Boggs (24:15) Yeah. She loves it.

Scott Benner (24:16) Very cool.

Shannon Boggs (24:17) She was an Omnipod user, and we went to Friends for Life, not this past year, but the year before. And they were doing the demos, and she tried it, and she loves it. She doesn't wear it tubeless. Like, you know how you they've got the little sleeve. She doesn't wear it like that. She likes the long tubing and it and, like, a good old fashioned little pump clip.

Scott Benner (24:35) Oh, okay. Yeah. She wears it, like, just like a like an insulin pump. Like,

Shannon Boggs (24:38) Yeah. To look for her belt or something. In the summer. She'll unhook and hop in the pool, and she loves her movie.

Scott Benner (24:44) Oh, that's awesome. That's great. I I love it when people find stuff they like that that that works for them.

TikTok Fame and Building Community

Scott Benner (24:49) So how did you I mean, at this point now, well, I feel like we've got enough of your story here. How did you become the lady from TikTok? Like, how does that happen?

Shannon Boggs (24:59) You know, it's funny. We had, like, a random TikTok account from, like you know, when when it was it was, like, COVID days, I guess, really. And the kids would get on there, and we would do, like, learn little dances when there was nothing to do. And when all this happened, I remember a girl, one of my friends that that works with me was like, you should, you know, do some videos and try to help other kids. Like, she was like, you know, maybe see what she's going through that they're not alone. So I talked to Raylan about it, she was like, yeah. And I would like to find some friends. Like, for the longest time, she was convinced she was the only girl with diabetes. Mhmm. Because where we live, there is like there was, at the time, like, five little kids, but they were all boys. And she's like, I just want a friend that has diabetes that, like, I can hang out with or talk to that's a girl that's kinda, like, closer to my age. So we kinda set out for doing that. And I think our first video was her doing a Dexcom change with her sister. And, man, that used to take us a long time, like an hour, because she was so scared and said it hurt. And so I think we did you know, we posted a video like that, and it just blew up, but it was, like, crazy, the the support, the people that you know, it locked me right into the diabetes community of all those people that are living this life with us. Yeah. So she has found we found a lot of friends online, a lot of people that we've met in person. We had a family. It's a mom with type one and a daughter with type one. They came. We put a video out there trying to find somebody for her to connect with, and they came and went camping with us. And since then, we probably visit them, like, three to four times a year. We go up to see them in New Jersey, and they come down here. And it's just built a lot of friendships. It's helped her motivate other kids, especially the younger ones. But then she also loves to follow, like, the older people that she sees, like, the teenagers.

Scott Benner (26:47) And Yeah.

Shannon Boggs (26:48) Actually, next week, we're going to see Riley Arnold. Do you know her? She's the one that's in dancing with the stars.

Scott Benner (26:53) I know the name, but I I don't know exactly. Yeah.

Shannon Boggs (26:56) Yeah. So I I mean, I don't know her either, obviously. But for Christmas, I got Braylon Taditz. And we're going to Virginia Beach next week to see her dance because Braylon's a dancer, and her goal her main goal in life is to be, like, a competitive dancer.

Scott Benner (27:08) Oh, wow.

Shannon Boggs (27:09) So I thought that that would be cool for her to see.

Scott Benner (27:11) My goal for the last two weeks has been get our radon level down in our basement. I I did it. I don't have as many fun goals as children do, apparently. I just realized I was like, what's my goal? And I was like, oh, I've reached I've reached my goal. I found that crack in the foundation, and I sealed it. Oh,

Shannon Boggs (27:26) that's good.

Scott Benner (27:26) That's good. So boring. I'm aware of you, and I don't and I don't really pay attention to social media.

Shannon Boggs (27:34) And Yeah. It's probably because I tag you and stuff all the time. People come to my videos, and I send them to your way.

Scott Benner (27:39) No. That's lovely, but that's not why. Like, I mean, I'm just I'm aware of you otherwise. Like, there's a few there's a few people whose stuff just kinda transcends and and makes its way to, like because I have that stuff. So when I open it up, I'm not following many people. I don't have, like, a yeah. And it pops up and, like, there's I see, Marley a lot. I see you Mhmm. A lot. Like, when it goes from, hey. We'll make a video, and you're used to, you know, dancing and 20 people sing it. And then it's a thousand people, and then it's 10,000, and then it's a 100,000. Like, like, what's the process that happens within your family? Right? Because now, like yeah. I mean, I've seen some of your your videos. Like, your your daughter has been very vulnerable in some of them. So, like Mhmm. Is there a moment where she thinks, like, I didn't realize all this many people were gonna see it, or does that seem not like a concern for kids? Like

Shannon Boggs (28:26) She is very, like, outgoing, and I don't know. She's just very people y. If you met her in person, she'd be your best friend in two minutes. Yeah. So she's never felt like that. Now I know that that she's a little older. We don't post quite as much of her doing this stuff because she's so busy, and it's such a pain for her to do it. You know how it is. Like, when they get older. You know, we're on from one sport. We're getting out of school, and she's got practice in an hour. She's gotta do a site change, and she just wants to get it done. So I wait for her to tell me, hey. I think I wanna do a video today. I wait I, like, totally follow whatever she wants to do. And sometimes, it's weeks before she wants to talk about diabetes. But I can tell you if there's one minute where I look at her and say, you wanna do a dance? She's like, yeah. Let's do that.

Scott Benner (29:11) Yeah. That kind of stuff is yeah. That's a gimme, right, at her age. Like, tell me how many followers do you have, like, on TikTok and Instagram and all that? Do you know? I

Shannon Boggs (29:20) do. I think on, like, TikTok, we're, like, 780,000.

Scott Benner (29:24) Mhmm.

Shannon Boggs (29:24) We didn't start posting on YouTube or YouTube and Instagram and all that till way later, but I think we hit, like, 200,000 on Instagram this year.

Scott Benner (29:33) And and what does that mean for a post? Like, you put up a you put up a video on on TikTok. How many people see it generally?

Shannon Boggs (29:40) Oh, gosh. I don't know. TikTok's kind of like I feel like shadow banning me lately, so we don't get a lot of we don't get a lot of stuff seen on there. We do better, like, on Instagram and Facebook lately.

Scott Benner (29:50) But Okay.

Shannon Boggs (29:51) I would say on average, if it's if it's a diabetes video, it does better because a lot of our community is from the diabetes community.

Scott Benner (29:59) Right.

Shannon Boggs (29:59) Because we we do a lot of lifestyle stuff too. We do travel. We do, you know, we do some stuff with our service dog. We do some stuff that's just funny, a mom and dad stuff. We try to not our page really isn't all about diabetes.

Scott Benner (30:12) Right.

Shannon Boggs (30:12) But those videos always definitely do the best.

Scott Benner (30:15) Is that a job? Like, do you have an income that you're just like, wow. This is or is it just like a little bit of money that's like, this is nice?

Shannon Boggs (30:21) Honest with you. It's yeah. It's not. There's been months where we have really taken off. I had no idea you could make money on social media. That was never a goal for me.

Scott Benner (30:30) Right.

Shannon Boggs (30:31) Right. I think so looking back, I've learned that when you get 10,000 followers on TikTok, you can apply for the creator's reward program. I think we had a 150,000 followers, and I had no clue. We were just having fun. Yeah. And we still we still treat it like that. My husband and I work full time. And then if we have a good month and we make some money on there, we'll take the kids on a trip or, you know, we're stashing money in their savings account. It's just, like, extra because I feel like it's something that we personally would never just rely on as an income.

Scott Benner (31:03) I just want people to to hear because I think that I see a lot of people who it seems to me are trying really hard to make a living at this. And

Shannon Boggs (31:11) Oh, yeah.

Scott Benner (31:12) And then, you know, a year later, I don't see them anymore. And it's a whole new group of people trying, and I'm I just I don't know.

Shannon Boggs (31:19) I agree. It's very it's very oversaturated now right now. And I, you know, I feel like you can't like, for me, I didn't wanna have a niche where my niche was all gonna be diabetes. We're just gonna talk about diabetes because first of all, I don't have diabetes, and I don't wanna rely on my kid

Scott Benner (31:36) to have to content. Yeah.

Shannon Boggs (31:38) Yeah. Because she's a kid. She doesn't wanna have to do that all the time. Like I said, I take it totally as it comes when she comes to me and is like, hey, mom. I thought we could share this today, or I thought something would be funny today if we post this. Then we do it, but I'm not constantly after her for every site change she does or let's talk about

Scott Benner (31:55) Right.

Shannon Boggs (31:55) This today because I still want her to have a life and just be a kid.

Scott Benner (31:59) I also think you can get caught up in that thing where you make a couple bucks doing it, and you think, oh, if I only had more followers or more views, and then you're, like, desperately making content constantly. And

Shannon Boggs (32:12) Like, I never look at my analytics ever. Mhmm. People are always like, well, what time does your video do better? I don't have a clue. I've never looked at that. Yeah. I really truly don't. We post whatever we feel led to post and whatever we think is gonna bring joy to people at the time when we feel like it. I don't plan things ahead. I don't have drafts ready to go. Like, I wake up and I'm like, I think this is what I'll talk about today. Truly, that's kinda how I take it.

Scott Benner (32:36) I woke up one day a couple years ago, and I was like, maybe I'll do videos every day. And then I think I was, like, a day and a half, and I was like, oh, I'm definitely not doing this.

Shannon Boggs (32:44) Yeah. It's a lot. It's a lot editing and

Scott Benner (32:46) I don't wanna be involved. Is is but but it's funny you use the word oversaturated. I literally just had this conversation with somebody where I kinda kinda was sounding like an old man, like, complaining, but I've lived through this already. I watched I watched the diabetes blogging community get oversaturated, and it ruined it. Yeah. And now I think it's happening with social media now.

Shannon Boggs (33:09) Yeah. I see that too. I mean, every time I turn around, there's there's somebody new on there, and I'm like, oh, I've never seen them before. You know?

Scott Benner (33:16) I don't need to see everyone change their pump. And the other thing that I've noticed along the way, and maybe you'll tell me I'm crazy or maybe you'll notice it too, is when you try to, like, fit a niche to how social media works, you end up doing things that I find odd. Like, there's just no doubt that pretty younger people, their videos do better. Mhmm. There's the more skin that an adult shows, the better the video does. Like, there's stuff that actually leans into this stuff, and I just think it's weird when you're just like Yeah. You know what I mean? Like, hey. What you know, here's my ass. Oh, look. My CGM. Yep. What are we doing?

Shannon Boggs (33:53) Yep. Yeah. I get it.

Scott Benner (33:55) And even the explainers, I like it a lot. I mean, Marley's a great example. I think what she does is really cool. But I mean, like, as a as a as a content thing, I don't know how long she can keep that up. And I also don't know at what point do people just go like, oh, I get this. Like, I've seen it already.

Shannon Boggs (34:11) Yeah. Yep.

Scott Benner (34:12) Her is an example. She wants to do that forever. I think that's awesome. I really think it's really valuable, but I don't know that it's a business forever. Yeah. And it does tail off. And people who keep it going for more than a year, that's really special. Like, as long as you've been going, that's amazing. Like Yeah.

Shannon Boggs (34:30) But I do think that it's because we, you know, kind of converted into we share a little bit of everything, and that's what I wanted. I

Scott Benner (34:36) don't Yeah.

Shannon Boggs (34:36) Because I have two other kids, and I wanna make sure I'm including them.

Scott Benner (34:39) Right.

Shannon Boggs (34:40) Right. I don't ever want them to feel like their sister gets a spotlight, and our page is all about her. So I try to include them too, and I'm like, you know, we do we do a lot of other stuff because that Right. You know, just for that reason mainly.

Scott Benner (34:52) You're not gonna avoid that. Like, I I've said I've said here before, but, you know, I don't know if I could have possibly spent another waking minute with my son when he was younger. Like, he played so much baseball, and I was always with him. Yeah. And they're reasonably well adjusted people as adults now. And still, I don't know, a year ago, we're having a conversation. He's like, yeah. When I was growing up, I felt like it was all about ardent or diabetes. And I thought I thought

Shannon Boggs (35:16) I know.

Scott Benner (35:17) Oh my god. Like, we put so and you start listing it. As an adult, he goes, no. I hear what you're saying. It's just how I felt. And then we turned to Arden, and she's like, I felt like we were always at Cole's baseball games. And I was like, you've gotta be kidding me. What are we trying so hard for if everyone was gonna be upset no matter what? But, yeah, it it just is and then you you amplify it, and then it feels like, I know that I I experienced this too. Like, to some people, I'm famous, which is Yeah. Which is ridiculous. And I and I wonder if you haven't felt the same way.

Shannon Boggs (35:52) Right. Yeah. When people come up to me or I'll get a comment, and they'll say, saw you at the mall today, and I was so afraid to say hi or whatever. And I'm like, guys, I'm just a normal person. We're all just normal people. Come say hi. We are not famous. Yeah. You know, it's just funny. Like like I said, I work full time. My husband works full time. Neither one of us retire or plan on retiring early from social media. As long as we're having fun with it, I think that's great. But it's never something that we're like, we're gonna quit and just rely on this because I want it to be fun.

Scott Benner (36:23) I saw this great video the other day. It had nothing to do with diabetes, but this this person, she was like, oh my god. Like, everyone's always asking me how much money do you make because I've got a couple of videos. Like, she had, I guess, a video that did, like, 30,000,000 and a video that did, like, 20,000,000 or something like that. She's like, now that I had these videos making all these millions, like, you guys wanna know how much I'm making. I'm happy to show it to you, and she's typing on her computer. And then she picks up her phone and turns around. She made, like, $10. And Yeah. Yeah. And and I was like, that's what more people need to see.

Shannon Boggs (36:53) Yeah. So it's definitely not about the money. It's just really just about having fun for us.

Scott Benner (36:57) Yeah. Also, if you're a reasonable person and an adult, you you can't build a business that a company outside of your control could turn a dial and change an algorithm a little bit and be like, oh, now you don't exist anymore.

Shannon Boggs (37:09) Yeah. Like, that's Exactly. Yeah. I mean, I've had a lot of friends that have over a million followers. They've left their creator rewards program because once you're in there and you have you know, they I feel like they kind of put your views way, way, way, way, way down so that they don't have to pay you.

Scott Benner (37:23) They don't want to they don't wanna pay you at that point.

Shannon Boggs (37:25) Yeah. Exactly.

Scott Benner (37:26) Yeah. They'll use you for the content, and then, like, the carrot and the stick that it's gonna work out. Yeah. I just, yeah, I just see a lot

Shannon Boggs (37:32) of Yeah. That It's not reliable.

Scott Benner (37:33) Desperation of, like like, this video has gotta work, and it's just it's a lot. I I Yeah. I don't I'm you know, as I explained to the person I was talking to the other day about this, like, I'm I'm insulated. I'm I'm in a bubble that I created, and it's kinda my own. And, like, so I'm not at the whim of, like, what TikTok decides to do or it doesn't matter to me if anybody follows me on Instagram. Like, that kind of stuff doesn't, like, impact me, but it's a very specific thing that I don't think exists for a lot of people. And Mhmm. You know what I mean? Like, I just it would make me crazy. Like, Apple messes with their their algorithm. Yeah. And it's upsetting. I am not gonna lie to you. Like, they made a change, like, two years ago, and I was like, I need to get into a car and drive to Cupertino and bang on the front door. Like, what are you guys doing? And then suddenly, they put it back. And you're like, what was that? And then and then it goes the other way, and then you're like, I don't know. Like, what are you doing? And, you know, this podcast sits in the top 30 of The US medicine category for, like, eight years. Like, I'm rock solid. Like right? But, like,

Shannon Boggs (38:36) still You should be so proud. You have done so well. You have brought so much good to so many people. And I'm telling you, anytime somebody comes to me, it's the first thing I tell them. Go to juice box podcast.

Scott Benner (38:46) Thank you. You're very, very nice. I I was trying to complain about Apple for a second, but that was nice too. Kinda draw trying to draw a picture for somebody. Like, it's bizarre that you could be doing the same thing today as you did yesterday, and you're reaching the same number of people, but they just change your metrics. And you're like Yeah. Oh, okay. And then now what? Like, what if they don't put it back? Or what if they, like, what if they zhuzh it up the wrong way or the right like, is any of it real? Like, you get to the point where you just go, I don't care about any of this. Like, I measure this podcast now by, like, the people I hear who are who find it valuable.

Shannon Boggs (39:24) Yeah.

Scott Benner (39:24) That's it. If I'm hearing those voices and those stories every day, I just assume it's working.

Shannon Boggs (39:30) It's almost like diabetes where you can do the same thing and eat the same thing every day, and you won't always have the same results.

Scott Benner (39:36) Yeah. Hey. That's a great way to put it, Apple. You're like having diabetes. It's super interesting. And I think from the outside, it is very easy for people to look and think, well, you know, Shannon and her family, they're famous. They must be rich from this or, like, but

Shannon Boggs (39:50) I think you're right. Yeah. I think you're right.

Scott Benner (39:52) It's just really

Shannon Boggs (39:53) And I just always try that's why I'm always, like, transparent. I'm like, no. We, you know, we're having fun. We're doing our thing. We're hoping to bring smiles to people. And if there's anything extra left over, like, we're we're using our money this year. We're going back to friends for life. I told my kids that that's what our trip is this year.

Scott Benner (40:08) We'll we'll get to meet. I'm gonna

Shannon Boggs (40:09) be there.

Scott Benner (40:10) Yeah. That's lovely. I'm going down with, John from Sugar Pixel.

Shannon Boggs (40:15) Oh, cool.

Scott Benner (40:16) Yeah. We're have a big there's gonna be a big sugar, am I supposed to say it? Whatever, Sean. There's a big, John will get so mad at me. There's gonna be a big Sugarpixel at Juice Box podcast booth with Friends for Life for sure.

Shannon Boggs (40:28) That is awesome. Yeah. Yeah. We will be there. We'll come see you.

Scott Benner (40:31) Oh, that'd be lovely. Yeah. Yeah. Even when people are like, you should, you know, do something with me on my channel. I'm like, I don't I don't first of all, I don't have time for all that. And secondly Yeah. I know you think it's gonna be valuable, but it doesn't work that way. Yeah. I'm talking to you because I think it's interesting. Like, I'm not gonna get one extra download even if you and I by the way, please do share it, but it's not gonna like, people from Instagram aren't suddenly podcast listeners because you're on a podcast. Like, some of them will go, but it's not a it's not a number that is, like, shocking. It's just the same as if you, you know, vice versa. Like, you're not gonna get some crazy bump from being on the podcast. Like, it just

Shannon Boggs (41:08) Right.

Scott Benner (41:09) The social media world doesn't work that way anymore.

Shannon Boggs (41:11) Yeah.

Scott Benner (41:12) It used to. I mean, getting on someone's side you know what I mean?

Shannon Boggs (41:15) I just feel like once you find your audience, they're there. They're gonna be your people because they like you for who you are. You know what I mean? Like, I feel like a lot of people yeah. They're they're they're just like they genuinely you know, like one of us in the family or all of us in the family, or they look forward to seeing our our our adventures or whatever. You know?

Scott Benner (41:33) I hear you. Yeah. Let's see. It is really interesting. I don't know. I'm I'm always, like, a little vexed by it. Like, I think it's interesting. I I'm happy that it works. At the same time, I feel weird when I see people just, like, they're trying so hard. And I'm like, even if you get there, wait wait till you get there and find out it's a $124. Yeah. I know people who make videos for companies. And I finally, one day, was like, what what do they pay you for that? And then Yeah. And they told me, and I was like, oh my god. Really? I was like I was like, that's it? It's like a it's like a few $100 to make a video?

Shannon Boggs (42:06) And I remember Yeah. Talking to somebody that had 2,000,000 followers, and we were on a brand trip. And she told me, don't ever rely on the platforms themselves to make you money because brand deals is where you will actually make money. And they're not always easy to get. Yeah. Like, it just depends. You know? I I've lucked out, and I have certain brands that I work with that will contact me regularly, and I'll work with them a few times a year. Some things that I already use at home that I love, products that I love already. As far as, like, the actual platforms, plus, you know, people get hacked and banned and their pages taken down. It's just not very reliable, I feel like, for a forever income.

Scott Benner (42:43) No. No. For certain. And it is it is weird to say because it sounds like it sounds so bullshit, but I am wearing Cozy Earth sweatpants right now. It's so easy for me to do their ads because I'm just like, I do I really do love this stuff. I know. Yeah. That's how I am. I take your point. Like, I mean, I have a lot of advertisers in the diabetes world, but I reach a lot of people. So it's sort of a no it's a no brainer for them Yeah. You know, to be involved with it. When I first started doing it, like I mean, I've been doing this for this is my twelfth year.

Shannon Boggs (43:13) Wow.

Scott Benner (43:14) I think I talked Omnipod into buying an ad when I basically I used to write for their blog, and it it wasn't I think I wrote, like, six blog pieces a year. I just said, like, please don't make me write the blog anymore. Just give me the money, and I will give you ads on my podcast in exchange. And they were like, well, how many people are listening to the podcast? I'm like, well, nobody really. I was like, but I was like, I'm gonna build it up. I promise. And they were just kind enough to be supportive back then because there was no reason to

Shannon Boggs (43:43) Yeah. That's awesome.

Scott Benner (43:44) And then it was one company that gave me it wasn't even it's not like it was enough money to, like, to put in as much time as I was putting it. It was enough money to, like, show to my wife, like, look. I got money for this. Like, let me do it for a while.

Shannon Boggs (43:57) Yeah.

Scott Benner (43:58) And let's see what happens. Yep. And now 1,821,000,000 1,800 episodes, 21,000,000 downloads later, like, it's it's this crazy thing, but it started off by me just thinking like, oh, I can't keep writing this blog. Like, told you, like, blogging died. They people there were 4,000 diabetes blogs at the peak. Like, who the hell is reading? Nobody's reading all those. Yeah. I pivoted to the podcast thing, and I think I just got there first. I think that was kind of, you know, what happened. I I did have this moment today where I was thinking about all the times that people try to talk me out of this or kind of make me feel bad about it along the way. And it was like from day one, before I even started it, a guy told me, I won't say his name, a guy told me, well, you can start a podcast about diabetes, but you're gonna run out of stuff to talk about very quickly.

Shannon Boggs (44:49) Oh, wow.

Scott Benner (44:50) And I actually thought that doesn't sound right. But okay. But that still was in my head. Like, I'm gonna run out of things to talk about. Then I started it up, and four or five months later, this person reached out to me and they were like, hey, you don't know me, but I'm gonna start a diabetes podcast and I need help. And I was like, okay. So, like, I talked to that person and, like, helped them with microphones and stuff like that. And at the end of the phone call, they said, I'm gonna do it differently than you. I don't like the way you do it. And I was like, oh, cool. Thanks for calling. I was like, what is and then that vibe was and that stuck on me for a while because, like, the old school bloggers hated me. And they were like, he's talking about how he takes care of his daughter. He's like sharing what they do. You can't do that. That's really dangerous. And now twelve years later, I have I have literally tens of thousands of notes here I could show you from grateful people.

Shannon Boggs (45:45) I just love how you come at it with a different you always have a different perspective because there's always different people that are coming from the diabetes space in a different way. Like, today, I'm here as a mom, and tomorrow, you might have somebody that's lived with it for fifty four years. Yeah. Like, that's what's what I think is really cool about what you do.

Scott Benner (46:03) I appreciate it. You just picked a funny number because I've already interviewed a woman today who is 54 years old and has had diabetes for fifty one years and just got Addison's disease. And, like That's funny. And she was talking about that. You know? And, like, I don't even do what I'm doing with you very often, which is interviewing somebody who anybody's ever heard of before because I really like to hear people's, like, un like, even you Nobody knows. Yeah. But even you, like, the first twenty minutes we talked, like, I enjoyed hearing your story, but you've probably told people that a 100 times. Yeah. You know what I mean? Like, I like people who are, like, saying it out loud for, like, the first time and listening to them, like, pick through their lives and and because that's when they come up with kinda stuff or things that are worth sharing or they say something valuable for someone else. I don't know. I like I like interviewing people who've never had a microphone in their face one time. I think Yeah.

Shannon Boggs (46:53) I get that.

Scott Benner (46:54) Yeah. I think it's an I think it's I mean, not the other people aren't interesting, but it's just for long term for having legs. You just need to keep hearing different stories.

Shannon Boggs (47:02) Yeah. I couldn't agree more.

Scott Benner (47:03) As much as you can. So is your daughter only good on, like, the videos? Or, like, if she came on the podcast, she could she hold a conversation for an hour? Like, what's

Shannon Boggs (47:13) I think she could hold a conversation. She's super yeah. She's not shy. She's super chatty.

Scott Benner (47:17) Would she talk about her diabetes? Yeah. Yeah? If she wants to, you should tell her, I'd I'd love to do it with her because

Shannon Boggs (47:24) Yeah.

Scott Benner (47:24) It's interesting to hear so I'm gonna now say the opposite thing I just said to you. You're an adult. You know, you know what you think and you you feel like, you know, you say things over and over again. But a kid who's articulate and willing to talk about it, she'll share stuff that other kids you can't pry out of other kids because she's a little Yeah. She's a little media trained. So she'll do like, she'll she'll get talky and so, yeah, it'd be cool. There's no pressure, but if she wanted to, I think that would be really cool.

Shannon Boggs (47:51) Yeah. Okay. I'll definitely ask her.

Scott Benner (47:53) Again, it took me, like, two years to get you to do this. So, like

Shannon Boggs (47:56) I know. I know. I had it scheduled with you a while back, and I woke up with a stomach bug the day that we were supposed to do it. It was awful. I felt so bad to cancel.

The Realities of Diabetes Service Dogs

Shannon Boggs (48:05) So it's funny. Like, you know, you see so we have a service dog, and we apply I literally started looking up service dogs when she was still in the hospital because I saw people talking about it.

Scott Benner (48:16) Mhmm.

Shannon Boggs (48:16) And our service dog is great. I love her. She's wonderful. Don't get me wrong. But I feel like so many people, including me, you know, we've shared videos of her. Now I feel like everybody that has a kid with diabetes thinks that they need a service dog. So I have put that out there. Like, please don't feel like you are less than as a parent because you don't have a service dog. Because now that we have a few years under our belt, we definitely don't rely on her like we thought that we would. She's great. She's a great backup. But, also, I just you know, I said this on another podcast that I was on, and they were like, oh, I didn't even think about that. Like, the dog will go to school with Raylan, and Raylan has to think about when is she gonna take her outside for a break. When is she gonna make sure she has water? Then she has to clean up after her. She has to find a spot that's out of the way in each class that she goes to because she's changing classes. And then she's got all the extra stuff for the dog plus all of her diabetes stuff plus her book bag and laptop. So it's it's a lot. So I always tell people, like, if you it's just something that I want to tell parents. Like, consider that. Because some days she's like, mom, it's just too much today. I have I have a test. I have this. We have this going on at school. And after school, she's like, I don't think I'm gonna bring her to school today. And I'm like, okay. That's fine.

Scott Benner (49:37) You can leave her in. That is exactly I don't know if I'm more more cynical person or whatnot, but I and I've had tons of people on to talk about their dogs, and I'm happy to have the conversation with them. But you couldn't get me to get a diabetes service dog by putting a gun to my head. I'd be like, no. Thank you.

Shannon Boggs (49:53) Yeah.

Scott Benner (49:54) I mean, I the CGM works fine. I'm good. Yeah. And I don't I'm not looking for all that, all the the extra stuff. Like, nothing like, I have dogs already. Like, you know, and

Shannon Boggs (50:06) It's a lot that people don't think about. And she's great when when it's summertime, and she's out in the yard, and we're running around without the phones, and she doesn't have a blood sugar reading on her, or we're swimming or in the water. If we post a video and we go to anywhere, anywhere without the dog, people immediately in the comments are like, where's spy? And it's like, she even Raylan's like, these comp mom. They think that she has got to go with me everywhere. Like, my goodness. And sometimes the dog needs a break. Like, she's maybe she went to school with her that day, then she needs to come and have a break in the afternoon. And, like, lord forbid, we go to Walmart without her.

Scott Benner (50:43) Well, you know what? It's interesting too because you you run the risk of telling your daughter, hey. You can't exist without this dog. And Yeah. And there are plenty of people living with type one diabetes don't don't even have a kitten. So, like, they're, you know, they're they're okay. I mean, again, if it's something somebody wants and it's valuable for them, I mean, god bless. I don't I couldn't possibly care less. But I don't want you to, like, run around feeling like this like you said, like, this has to happen or I'm somehow not doing everything I'm supposed to do. I'm gonna tell you, I think you could be perfectly fine your whole life and not have a diabetes service dog. Yeah. And by the way, they are incredibly expensive most of the time, and there are a lot of companies out there that will take advantage of you and sell you a very overpriced dog that isn't gonna sniff your socks. So and then later, they'll tell you, oh, whatever. Sorry.

Shannon Boggs (51:32) Yeah.

Scott Benner (51:32) Yeah.

Shannon Boggs (51:32) Yeah. Yeah. Yeah. I I tell everybody to do their research. I've had parents message me, say, like, you know, they feel bad not having a dog for their kids, and I'm I've told them exactly what I just told you. Like, please do not ever feel like that because if I had have probably given it more time and gotten used to it before we jumped into it, I don't think we would have felt like, oh, we have to have this dog. She is definitely a blessing in our life, and we love her to death. And she has definitely woken us up and caught Raelon's high and low blood sugars for sure.

Scott Benner (52:03) Mhmm.

Shannon Boggs (52:03) But like you said, with the technology that we have these days

Scott Benner (52:07) It does look too.

Shannon Boggs (52:08) Yeah. Even people she's born in middle school, and when she gets to high school, her dog will be pretty much retired by that age. We'll have to think about, are we gonna get another dog?

Scott Benner (52:17) Are you gonna

Shannon Boggs (52:17) do see her wanting another dog because I think she's very independent, and she's not gonna want the extra k you know, asshole.

Scott Benner (52:25) Turns a fun pet into, like, a anchor too. It's like yeah. Yep. I can just I'm picturing you and your husband laying in bed one night trying to go to sleep, one of you just turns to the other one and goes, why why did we we didn't need that dog.

Shannon Boggs (52:40) Cool. And, like, also, our dog is not trained as tightly as some of the other dogs. Like, some of them are waking their the parents up at a blood sugar of one forty

Scott Benner (52:48) Okay.

Shannon Boggs (52:49) Because they think it's a high blood sugar, and I'm like, woah. Man, I'm glad she doesn't do that because I think that would just drive me crazy.

Scott Benner (52:55) I would prefer if the algorithm just gave a little insulin at one forty. That sounds maybe

Shannon Boggs (52:59) better. Exactly.

Scott Benner (53:01) My gosh. Yeah. Again, I it's no shade for anybody. Like, I No. Again, if it's something you like, I I couldn't again, I couldn't possibly care less. I'm happy for you if you're happy. But my goodness. I mean Yeah.

Shannon Boggs (53:13) It's just it's a commitment that everybody needs to consider. Like, we've had a lot of medical stuff pop up with ours that on top of what we spent to get her I mean, she was in the ICU at a college hospital one time something that will still never diagnose, and we got a $13,000 bill.

Scott Benner (53:30) Oh my god. Are you serious? Yes. So

Shannon Boggs (53:34) I always tell people, like, make sure you consider

Scott Benner (53:37) all of the things Let me just

Shannon Boggs (53:38) the things that could

Scott Benner (53:39) pop up that you're

Shannon Boggs (53:40) not expecting.

Scott Benner (53:41) Oh my god. Let me give you a little insight into what would happen if that happened to me. I'd be like, Kelly, this dog you told me we had to get, there's a bill here for $13,000 for it. It's a good it's a good thing. And then I just would curl up into a ball and lay on the ground. Yeah. Yeah. Yeah. Yeah.

Shannon Boggs (53:58) It was a struggle.

Scott Benner (53:58) It was bad. I was like, oh my god. Yeah. That would've that would've sent me into a very quiet I would've just walked away quietly. And you and would've been like, oh, Scott seems upset. Like

Shannon Boggs (54:12) Yeah. It was a shock. It was a shock.

Scott Benner (54:14) I don't know. Don't wanna know how many times your husband drove back and forth that bridge for $12,000 or how many people's hair you've had to cut to make that money or whatever. Yeah.

Shannon Boggs (54:22) That's what I'm saying. I'm like, don't ever think because your fundraiser's over that that's the end of it because these dogs are still pets at the end of the day that can Yeah. You know, have emergencies.

Protecting Your Peace on Social Media

Scott Benner (54:32) You know, you bring up fundraiser. I'm gonna pivot a little bit to something and that I have, like, a unique perspective on. I wonder if you have an opinion about it. And so being a person who runs, a really large community, there's certain things we just can't do. And some of them are obvious. Like, you can't let people go on on about their religion and and preach. You can't let Yeah. People talk about their politics. It just doesn't work. You can't like, you know, you can't put up a story about somebody with diabetes who was detained by ICE and passed away and say, well, this isn't statement. Well, trust me. It's gonna be in about ten minutes. Like, you know, that there's certain things you can't do. Right? One of the things you can't do is you can't let people put up links to their diabetes walks, to their I'm trying to raise money for a service dog. Yeah. I have an Instagram where I'm trying to like, anything like that. Like, we just we don't it just turns the it turns the group into a billboard. And Yep. And you and you can't do it. But it's

Shannon Boggs (55:29) Also, it's so many scams. You don't know what's real and what's not real.

Scott Benner (55:32) Yeah. I that's the other side of it is you're you put that post up, but you're opening up everybody who sees it into being scammed. Most people are very kind, so they're not gonna think twice about it when someone says, hey, know, can you meet me in a Walmart parking lot and bring a CGM? I'm on vacation. And I would love that for the people who, by the way, who are really in that situation and the people who wanna help them. They also don't realize that Facebook doesn't allow that. It brings bad attention to the group. Like, there's a lot of Mhmm. There's a ton of reasons. So I end up being the person who has to be like like, no. I'm removing your post about, like, your JDRF walk or you're trying to raise money for your dog or like. And then I feel like I feel like the Internet is full of, like it's, like, about a thousand people who think I'm the biggest asshole in the world because of stuff like that, but there's just nothing. I need another voice to tell them all that, like, I can't I

Shannon Boggs (56:23) agree with you. I do the same you know, I get a lot of DMs. Will you share this? So and so was it an accident? My uncle's having cancer treatments. You know? And you look. You're I couldn't agree more. You just can't do it. I don't know what's real. I don't wanna open that up to my followers not knowing if this is a scam that we're falling into. So I choose the same thing. Unless it's somebody that I personally know, like, in my town that has asked me for something, I might share it, like, on my story or something and explain what it is. But if it's a stranger that I don't know, I just am too scared to open that door just mainly because I don't want people getting taken advantage of. But you running a group, I agree. You can't if you let one person do that, your whole page becomes it, and that's not what your page is for.

Scott Benner (57:07) Yeah. It's it's there to help people so they can talk to each other. You you know what Like, that's what it's there for. You can't and also the algorithm ignores that stuff to begin with. Like, Facebook's not showing anybody your JDRF walk post. It's just it's not gonna show it to anybody. And then for every person who's just like, hey. You know, hey. Here's my kid's Instagram. She talks about diabetes sometimes. Like, cool. Like, that I'd be happy to leave that up except that for every person like that, you know, maybe for every 10 people like that, there's one person who really, like, maniacally is trying to start a business. They want money and they want followers. Mhmm. They're vicious about it. There's one in I have one in mind right now. I would never tell anybody who it is. Yeah. But the person came into the group, acted all like, oh, I'm just here. Like, you know, I just need help for my family and blah blah blah, and then was very quietly building up, like, you know, Instagram, TikTok, Facebook, and DMing everybody to, like, fill up their followers list and everything. And we I finally figured out it was happening. Mhmm. You have no idea. Like, I'm such a decent person. Like, I reached out, and I was like, hey. You can't do that. Like, please don't do that. Yeah. And my my moderator was like, just ban them. And I was like, I'm like, maybe they really you know, like, and the per the person apologized in circles. I'm so sorry, blah blah blah. Thank you for telling me. It never happened again. I don't know that they paused for an hour, just right back at it again. And so we figured out that they were still doing it, and we banned the account. And then they came back in through a spouse's account and just started doing it again. Oh. And then we figured that out and banned that account, and now that person is out in the world with a reasonable following.

Shannon Boggs (58:45) Yeah. I would love to talk to you about this when we're off camera because I think I know who it is, and I got a little attacked by the same person too.

Scott Benner (58:51) And then and and then it's just, like, it's crazy because then, like, then they're they talk badly about me. And I'm like, wait. What what like, I see what you're doing. Like like like, I'm you're

Shannon Boggs (59:01) I mean, even even on me personally on your page, I go under I'm only following your page under my first, and it's not even my last name. So that's why when somebody tagged me or something, you didn't

Scott Benner (59:13) even who I you one time. Yeah. Yeah. Yeah. Yeah. Yeah.

Shannon Boggs (59:15) I don't comment under my page that we, like, have social we do a social media under the Boggs family. Right. I don't even comment on your page on that. Like, it's just strictly under my and that's I have my private account that's just for my local hometown friends.

Scott Benner (59:29) Right.

Shannon Boggs (59:29) Yeah. I mean, I've never tagged any of my stuff on yours. You know what I mean?

Scott Benner (59:32) Like No. Of course. Yeah. We banned Yeah. All the pages. We banned pages. And that, by the way, that makes people upset. Like, why won't you let me be? And in the end, what I've learned is

Shannon Boggs (59:41) break.

Scott Benner (59:41) What I've learned is is that that group is it's so big, and it's so active that when other people are out in the world just desperate to make a business or or or a It

Shannon Boggs (59:54) will never work. You have you can't go looking for followers. They just have to find you

Scott Benner (59:58) Yeah.

Shannon Boggs (59:58) By if it's meant to happen. You know?

Scott Benner (1:00:00) But once they get a couple from a post, then it's like crack. Then they can't stop. They're like, oh, they wanna do it again and again and again. Like, oh, I posted and I got 10 followers. I'm gonna do it again. I'm like, no. You're not like, I work with companies, and I'm like, look. I'll post for you every once in a while, but we're not doing it ad nauseam. Like, these the way I explain it to everybody is those are people. They're not fish in a barrel. You you know what I mean? Like, you don't get to go hunting in that barrel. Like, those people need to feel safe here. They need to not feel like they're being sold to constantly. Yeah. And, you

Shannon Boggs (1:00:31) I agree.

Scott Benner (1:00:31) And and there have been elaborate scams. There's this one there was this one per one account. I don't even say guy or girl because God knows who you're actually talking to. Right? But there was one account that posed as an adult in, like, their mid to late twenties. And every time they posted, they would get two responses pretty immediately. One from both from middle aged women. And one of the women's voices was very motherly towards him, and one of the voices was very flirty towards him.

Shannon Boggs (1:01:00) Oh, pretty.

Scott Benner (1:01:01) It took us a while to figure out that the it was the same all three accounts were the same person. And so we banned them out and got them like, got rid of them. And I don't tell anybody anybody's business. They just but they were popular. And then people started saying, hey. Where's this person? And I'm like, look. I you know, they're not here anymore. I don't wanna say because I don't wanna, like you know you know mean? Like, I don't wanna, like Yeah. Whatever. I'm not trying to tell anybody's business. And so, like, I won't say, and then they're like, well, you should let them back there. I'm like, oh my god. You this is me? I'm like, I'm getting blamed? And I'm like, ugh. I'm just trying to live my life. It's a weird position to be in because I don't I'm not looking to be a gatekeeper on something. Yeah. Yeah. But you put it very well, like, you don't know who's scamming. I don't wanna open people up to that, and I don't have time for all this to begin with.

Shannon Boggs (1:01:47) And, also, what you're doing already works, and you've had these rules in place for so long. Like, I wouldn't change anything

Scott Benner (1:01:54) Yeah.

Shannon Boggs (1:01:54) Just because people if they don't get if they get mad, go somewhere else. Don't worry about you know what I mean? Like, that's you don't have to be in my on my Facebook page.

Scott Benner (1:02:00) Yeah. I used to have a bit of, like, a complex about, like, well, I don't wanna, like I don't wanna ban anybody because I know how valuable the space could be for them. Yeah. And there's a moment where I was like, I can't I can't that can't be my problem anymore.

Shannon Boggs (1:02:13) No. You're right. You gotta protect your peace for sure. That's number one.

Scott Benner (1:02:16) Yeah. That's a good way to put it exactly. So anyway Yeah. What have I not talked to you about that what I should have brought up? Did I miss anything?

Shannon Boggs (1:02:24) I don't think so. I think we covered let's see. We covered

Scott Benner (1:02:26) Did you I didn't even know if you didn't even put notes in, did you? Didn't even know if No.

Shannon Boggs (1:02:29) I don't know that you sent me any. Just figured we were winging it.

Scott Benner (1:02:32) Yeah. It went very I well, yeah. I I assumed you knew how to talk about diabetes. Yeah. What's it can I ask you a question?

Shannon Boggs (1:02:38) Yeah. Sure.

Scott Benner (1:02:40) How long did it take you to hold that phone up in front of you before you stopped feeling like an asshole? You know what I mean? Like like, you're like, oh, I'm dancing in front of my phone here. Or or do because you used it with your kids for fun, was it already, like

Shannon Boggs (1:02:54) I think it was already, yeah, just kinda, like, so so natural. I think you have to get you have to get used to people are gonna talk about you no matter what. Mhmm. And especially people that know you in real life, and then they see you, like, blow up on social media. I think it sparks a lot of, like, jealousy, but I'm still the same person that I've always been. And, you know, I just had to get get it out of my head. Their opinion is none of my business.

Scott Benner (1:03:19) I learned, like, such a long time ago that if you're gonna do anything like this, there's a wall, and you just don't care about what's on the other side of the wall.

Shannon Boggs (1:03:28) Yeah. You just have to. I mean, once you put put yourself out there and your, you know, opinions and I mean, anything, even you know how it is. If you talk about how you don't eat a low carb diet, you have certain people coming after you saying, oh, well, you shouldn't do this. Or if you're feeding your kids a low carb diet diet, then they're going after that person. So there's always gonna be people that yeah. There's there's always gonna be people that are that are not pleased with what you're talking about, and it's like, well, you just have to get over it.

Scott Benner (1:03:55) Low carb is such a fun one. It used to be the peep they used to be so much aggressive. It's calm either it's calm down or they've learned to leave me alone because I don't pay attention to them. I'm not sure which one it is exactly. Yeah. But that one's interesting or just anything, really. Like, anybody my favorite one my group has, like, I think we're, like, up to, like, 84,000 people. Right? Mhmm. The activity's insane every day. And the other day, somebody comes on and goes, you know, you shouldn't be asking people on the Internet for their advice. And I was like, you're in a community for type one diabetes. Like, look at all the posts. They're all Yeah. Like, do you not know what the Internet is? And I was

Shannon Boggs (1:04:31) like It's not like you can just walk out on the street and ask your neighbors because so many people don't have diabetes. Yeah. Like, you have to branch out to find a community.

Scott Benner (1:04:39) I I I just I love it when somebody seems to not understand fundamentally what the Internet is, and then they're they're like, you you shouldn't ask other people this. I'm like, oh my gosh.

Shannon Boggs (1:04:47) No. I mean, I truly have gotten so much help by being like, hey, guys. What do you do for this? Or, you know, what's what's your opinion?

Scott Benner (1:04:55) How do I deal with this?

Shannon Boggs (1:04:56) Because I'm still navigating so many new things. Even though we've had it for three years, I'm we're getting ready to hit the preteenage. And I know when I go into the teenage age, we're gonna go through a whole another wave of struggles and trials that I'm gonna have to figure out how to navigate. So I feel like the Internet is so important.

Parenting Through the Teenage Years

Scott Benner (1:05:13) Yeah. Me too. But it's gonna change so many different times. You you can't even fathom it right now. Yeah. Like, it's gonna pivot so many things.

Shannon Boggs (1:05:20) Hardest part for you as far as being a dad? What age group or what moment that you're like, this is probably the hardest?

Scott Benner (1:05:27) I think the hardest part was when she was sort of like, hey. I can do this myself, and yet she wasn't really there yet.

Shannon Boggs (1:05:37) Mhmm. And What age was that?

Scott Benner (1:05:39) It felt like it happened a little bit in high school where, like, you don't need to, like you know, dad, you don't need to do this. Like, you know what I mean? Like or, you know but still enough where she needed help or that didn't last long. It just happened once in a while. Like, every once in a while, she seemed like, why are you like, I don't need your help. And then five seconds later, she needs your help. Yeah. And then college, she was, you know, we were she was doing great. I wasn't really very contact you know, I wasn't contact her that much. I was more of, like, I was more of, like, diabetes Google for her. You know what I mean? She'd be like, how do I do this? What's this thing? And she'd go off and do it on her own. But now in the last couple of years and she's gonna be 22 this summer. Like, I'm not saying I'm, like, involved, but, like, she's going and this is where I'm personally having the most difficulty. If she's going through a very healthy, you know, part of her life where she's figuring out, like, who she is and and she's, you know, pushing back a little and separating from a lot of different things, which you would expect kids to do, and I've my son did, and you you want them to do that. Except when that thing turns into, well, I don't wanna change my CGM until, like, the last possible second, or I know my pump's not working well for the last eight hours, but I'm not changing it until after dinner.

Shannon Boggs (1:06:51) Yeah. We go through that a lot.

Scott Benner (1:06:53) Yeah. And you're sitting there thinking, like, just change it now. It'll make the next twelve hours of your life so much easier if you just do this now. But you don't say that because you understand that she's she's learning about herself and diabetes in the world and her as an adult. And I do believe she'll I do believe that it's gonna be a process that she'll come back. I I don't wanna make it sound like she's, like, off the off the reservation. Like, Arden's got, like, a six. I think her a one c is, like, six, seven right now. But that's completely managed on her own while she's in while she's in college. It's fantastic. You know?

Shannon Boggs (1:07:25) Absolutely.

Scott Benner (1:07:26) You give it back to me right now. I'll have it at a $5.06 in a month.

Shannon Boggs (1:07:29) Yeah. Yeah.

Scott Benner (1:07:30) That's not what we're doing anymore. And so the difficult part is just shutting your mouth.

Shannon Boggs (1:07:36) Yeah. I'm having to learn that.

Scott Benner (1:07:37) Like Yeah.

Shannon Boggs (1:07:38) I have to you know, we give my daughter a lot of freedom. She proves us to be that she handles it well. Mhmm. But when she's away at a friend's house for a weekend and we let her go overnight, like, maybe to her cousin's house and stuff, I will not hear from her. I used to hear, you know, hey. Send me a picture of food. What should I bolus for? I don't hear anything. And her blood sugar is usually pretty darn good, like, range the whole time.

Scott Benner (1:08:03) Mhmm.

Shannon Boggs (1:08:03) And I've had to learn, like, don't check up on her. Don't you know, unless she's really low. Like, she's like, don't call me unless I'm, like, in the sixties and I've been there for a while. Like, give me a chance to you know? So I I know that as we get into high school, it's gonna be more of that just trying to let go a little bit of the of the control and let her be her own person and make those own decisions.

Scott Benner (1:08:24) There are plenty of people who are listening whose kids it's not gonna work out for. Like, diabetes is a lot about personality. Yeah. Right? Like, the way you would handle diabetes is the way you'd handle a job or going to college or not going to college. Like like, the way people think about things, and it's gonna impact diabetes too. I think I know Arden pretty well, and I think I know where she's gonna land. I think as an adult, she's gonna be like a low six a one c kind of person.

Shannon Boggs (1:08:49) Yeah. And that's what I would hope for for my daughter. I think that's great.

Scott Benner (1:08:52) Yep. And there's a couple of little decisions along the way that right now don't get made timely enough that are keeping that from happening. Same. But this is certainly not hurting her. And I do think well, you know, Sean, I've just I've interviewed so many freaking people that what I know is is that when a kid is diagnosed younger and they go off to college, there's a chance they're just gonna not pay attention at all. And and the college is gonna be a one c's and tens and eleven's, there's nothing people can do about it, etcetera. And then they graduate, become adults, and then they end up getting themselves together normally for the love of someone else. It's always like, met a girl or I met a guy. I wanna get married. I wanna be healthy. I had a baby. I wanna be here for them. Like, people have those real, like, human moments, and then they usually turn to their diabetes and fix it up. Don't I think Arden's gonna go through that process, but I still know that that's a human process. And so as if she's handling it this well right now, I don't wanna be the one telling her, no. You're taking the service dog to school. I don't care if you have a test. Like, know I

Shannon Boggs (1:09:54) mean? Exactly.

Scott Benner (1:09:55) Right. Right. So, like, I just say I go, okay. This is good. And if something happens that's I mean, I still follow her. You know? I don't look at her blood sugar very often. But if but if something happens, not a lot, And I'm very careful about it because the way you approach her is important and the tone and it's all very important. Right? But you don't want her to feel like she's being watched or judged or that she's failing because she's trying really hard to begin with. There's a lot to consider in there. But, like, I might go to her and go, hey. Look. You know, you know, you're two twenty right now. You put 30 carbs in. Like, I saw you eat. Like, that was 50 carbs. Like, you know Mhmm. You missed. You know what I mean? You know, I think you need to bolus more. And sometimes she'll say, I got it. And sometimes she'll say, how much do you think? And every once in a while, you can tell when she's tired. She might just slide the phone towards me like, oh, okay. Well, let's let this Jack do it because he knows what he's doing. You know what I mean? Like and there's Yeah. And there's and you're

Shannon Boggs (1:10:50) also You created such a healthy space for her, and I like that and appreciate it because that's a lot of how we do things. Mhmm. I see a lot of parents with really, really great control with really young kids that don't know any different because they were diagnosed. Yeah. Yeah. Yeah. And if they were diagnosed at a young age, they don't have a lot of to compare it with. And if if they're not in school with other kids eating things and my thing was, like, just want her to live as normal as she can, and I want her to have a good relationship with food. I don't wanna create, like, a negative relationship with food.

Scott Benner (1:11:26) Very important.

Shannon Boggs (1:11:27) By restricting her too much.

Scott Benner (1:11:28) You also don't wanna build a a bad relationship with you.

Shannon Boggs (1:11:31) It yeah. That too. That too.

Scott Benner (1:11:33) And you don't wanna be so lenient that you hurt her health. Yes. It gets a very fine line to walk. It's Yeah. It is not easy. That's for sure.

Shannon Boggs (1:11:41) I know. I mean, we've definitely had our struggles, highs and lows with it, but I do feel like we're in a good spot now. You know, she's making good she's starting to realize what spikes her and what she thinks. Like, this past month, she's like, mom, don't I think I'm gonna eat chips anymore for a while. I'm gonna try to get into good shape, and she's running a five k. She's, you know, dancing, doing softball. And I was like, okay. And the other day, she said, have you noticed how good my blood sugar's been since I stopped eating chips? I was like, yeah.

Scott Benner (1:12:09) Yeah. I didn't wanna mention it. But yep.

Shannon Boggs (1:12:10) I loved that she made that decision on her own, but she also noticed Yep. That it's better.

Scott Benner (1:12:16) We left Arden's appointment one time, and we just got out in the parking lot. And she was like, is there something I could do to make this easier? And about her diabetes and and blood sugars and everything. And I said, honestly, I hate saying this to you. I was like, but could you stop eating cereal for a little while while I figure while I figure this out? Words. Yeah. I'm like, because I just didn't it was a long time ago. I just didn't have it. I I could bolus your cereal now. Like, it's no trouble. But, like, back then, I did not know what I was doing. Yeah. And I was like I was like, if you could just give me a month without the cereal so I could figure the rest of it out, I think I could figure the cereal out after that. And she was like, okay. I don't think she ate cereal for years after that. Yeah. She was just like, oh, and it just kinda left her the cycle was broken with it, and it just didn't happen anymore.

Shannon Boggs (1:13:01) We still haven't quite figured out cereal, but what we have figured out is she can have it at lunch or dinnertime, and it does a lot better than first thing in the morning. So she avoids it in the morning, and every now and then she'll ask for a bowl at, like, bedtime or, you know, before dinner, and it's just so much better. It's just that morning that we really struggle.

Scott Benner (1:13:21) The morning's probably pretty simple. It's probably overnight. She's probably getting less insulin overnight to keep her from getting low. She wakes up, gets feet on the floor, so she gets that big kinda Yeah. Like, adrenaline push, and there's already an amount of insulin that's missing from the lower overnight use. And then the sugar hits her quicker, the Yeah. And the milk and and the the carbs hold her up, and you're you lose before you start. Like, you you'd have to bolus probably while she's in bed to replace the the lost basil and then still do a good twenty minute pre bolus before she eats the cereal.

Shannon Boggs (1:13:55) Yep. Yeah.

Scott Benner (1:13:56) Then you're probably but that's a lot of timing while you're trying to go to the to school or to run out the door for something or something like that. Yeah. I take your point. Well, listen. This was Roy, and it was nice to get to meet you and talk to you like this.

Shannon Boggs (1:14:06) Yeah. Thanks for having me. I appreciate it.

Scott Benner (1:14:08) No. It's so it's it's it's really been lovely. We'll get off here. I'll tell you about how long until it comes out and, a couple other things. And, alright, I'll talk to you later. Thanks.

Outro

Scott Benner (1:14:23) This episode was sponsored by Touched by Type one. I want you to go find them on Facebook, Instagram, and give them a follow. And then head to touchedbytype1.org where you're gonna learn all about their programs and resources for people with type one diabetes. The podcast you just enjoyed was sponsored by Tandem Diabetes Care. Learn more about Tandem's newest automated insulin delivery system, Tandem Mobi with Control IQ plus technology at tandemdiabetes.com/juicebox. There are links in the show notes and links at juiceboxpodcast.com. I'd like to thank the Eversense three sixty five for sponsoring this episode of the juice box podcast and remind you that if you want the only sensor that gets inserted once a year and not every 14, you want the Eversense CGM. Eversensecgm.com/juicebox. One year. One CGM. Okay. Well, here we are at the end of the episode. You're still with me? Thank you. I really do appreciate that. What else could you do for me? Why don't you tell a friend about the show or leave a five star review? Maybe you could make sure you're following or subscribed in your podcast app, go to YouTube and follow me, or Instagram, TikTok. Oh, gosh. Here's one. Make sure you're following the podcast in the private Facebook group as well as the public Facebook page. You don't wanna miss please, do you not know about the private group? You have to join the private group. As of this recording, it has 74,000 members. They're active talking about diabetes. Whatever you need to know, there's a conversation happening in there right now. And I'm there all the time. Tag me. I'll say hi. If you'd like to hear about diabetes management in easy to take in bits, check out the small sips. That's the series on the Juice Box podcast that listeners are talking about like it's a cheat code. These are perfect little bursts of clarity, one person said. I finally understood things I've heard a 100 times. Short, simple, and somehow exactly what I needed. People say small sips feels like someone pulling up a chair, sliding a cup across the table, and giving you one clean idea at a time. Nothing overwhelming, No fire hose of information. Just steady helpful nudges that actually stick. People listen in their car, on walks, or rather actually bolusing anytime that they need a quick shot of perspective. And the reviews, they all say the same thing. Small sips makes diabetes make sense. Search for the Juice Box podcast, small sips, wherever you get audio. If you have a podcast and you need a fantastic editor, you want Rob from Wrong Way Recording. Listen. Truth be told, I'm, like, 20% smarter when Rob edits me. He takes out all the, like, gaps of time and when I go, and stuff like that. And it just I don't know, man. Like, I listen back and I'm like, why do I sound smarter? And then I remember because I did one smart thing. I hired Rob at wrong way recording dot com.

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#1847 Power of PACEs: Emotional Safety, Belonging, and Unconditional Love