#1870 British, Not Funny

Misdiagnosed with Type 2 in her 40s, Claire went into DKA while taking Mounjaro and discovered she actually has Type 1 (LADA). Hear her UK healthcare journey.

Proudly supported by

```html

Key Takeaways

• Misdiagnosis in adults is common; Claire was diagnosed with Type 2 diabetes in her 40s and took Metformin and Mounjaro before going into DKA and being correctly diagnosed with Type 1 (LADA) at age 49.
• GLP-1 medications like Mounjaro can be highly effective for insulin resistance and weight loss but might mask or delay the classic symptoms of DKA in a misdiagnosed Type 1 diabetic.
• Navigating the healthcare system (such as the NHS in the UK) often requires self-advocacy to access advanced technologies like insulin pumps and specific CGM brands.
• Late-in-life diabetes diagnoses come with their own unique emotional challenges, but finding community—whether online or locally—can alleviate feelings of isolation.
• Insulin alone does not necessarily cause weight gain; weight fluctuations are part of a complex interplay involving calorie intake, treating lows, and resolving prior conditions like DKA or unrecognized thyroid issues.

Resources Mentioned

• Eversense 365 CGM
• US Med
• Tandem Mobi System
• Juice Box Podcast Website (Defining Diabetes, Bold Beginnings, Pro Tip Series)
• Wrong Way Recording
• Omnipod 5
• Freestyle Libre 2 Plus
• Dexcom G7
• DAFNE Course (UK)
• Gousto / HelloFresh (Meal Prep Services)

FULL EPISODE TRANSCRIPT

Introduction and Sponsors

Scott Benner (0:00)

Here we are back together again, friends, for another episode of the Juice Box podcast.

Claire (0:14)

Oh, hi.

I'm Claire.

Scott Benner (0:17)

My grand rounds series was designed by listeners to tell doctors what they need, and it also helps you to understand what to ask for.

There's a mental wellness series that addresses the emotional side of diabetes and practical ways to stay balanced.

And when we talk about GLP medications, well, we'll break down what they are, how they may help you, and if they fit into your diabetes management plan.

What do these three things have in common?

They're all available at juiceboxpodcast.com up in the menu.

Scott Benner (0:45)

I know it can be hard to find these things in a podcast app, so we've collected them all for you at juiceboxpodcast.com.

If you're looking for community around type one diabetes, check out the Juice Box Podcast private Facebook group.

Juice Box Podcast, type one diabetes.

But everybody is welcome.

Type one, type two, gestational, loved ones, it doesn't matter to me.

Scott Benner (1:07)

If you're impacted by diabetes and you're looking for support, comfort, or community, check out Juice Box podcast, type one diabetes on Facebook.

Nothing you hear on the Juice Box podcast should be considered advice, medical or otherwise.

Always consult a physician before making any changes to your health care plan or becoming bold with insulin.

Today's episode of the Juice Box podcast is sponsored by the Eversense three sixty five, the one year wear CGM.

That's one insertion a year.

Scott Benner (1:39)

That's it.

And here's a little bonus for you.

How about there's no limit on how many friends and family you can share your data with with the Eversense Now app?

No limits.

Eversense.

Scott Benner (1:50)

Today's episode is also sponsored by US Med.

U S Med Dot Com Slash Juice Box, or call (888) 721-1514.

US Med is where my daughter gets her diabetes supplies from, and you could too.

Use the link or number to get your free benefit check and get started today with US Med.

The podcast is also sponsored today by the Tandem MOBI system, which is powered by Tandem's newest algorithm, Control IQ Plus technology.

Scott Benner (2:23)

Tandem Mobi has a predictive algorithm that helps prevent highs and lows and is now available for ages two and up.

Learn more and get started today at tandemdiabetes.com/juicebox.

Claire's Type 2 Misdiagnosis

Claire (2:35)

Oh, hi.

I'm Claire.

Scott Benner (2:37)

Hey, Claire.

How are you?

Claire (2:40)

I'm really good.

Thank you.

Awesome.

Good.

Scott Benner (2:42)

Where am I talking to you from today?

Where are you at?

Claire (2:44)

Oh, I'm in England.

I'm in a small town in Buckinghamshire in England.

Scott Benner (2:50)

How long have you had diabetes, or are you the parent of someone with type one?

Claire (2:54)

No.

I I have diabetes.

So I was I was diagnosed type two in 2018, but last year, I ended up in hospital with DKA, and I'm I'm now type one or LADA LADA Mhmm.

If you wanna put a label on it.

So, yeah, it's been a journey.

Scott Benner (3:11)

Label doesn't matter, really, does it?

Claire (3:14)

Yeah.

I I I didn't know that at the time, but I I do now.

Yeah.

Oh.

Yeah.

Scott Benner (3:19)

Let's find out about how old were you in in 2018?

Claire (3:23)

So 2018 was eight years ago, so was about 42.

I just had a high well, you know, went to the doctors, had a health check, had a I'd I'd kind of drifted in and out of prediabetes for for quite some time, and then eventually sort of slipped into the range that in The UK falls into type two.

Mhmm.

I never had any further tests done, and I started metformin for type two.

And that kind of kept me quite steady for a number of years, really.

Claire (3:55)

I never you know, to be honest, didn't finger prick.

You know, it's not advised here in England to as a type two, your sugar levels are just you know, you're just advised to take the medication and hope that that keeps you on an even keel, really.

Scott Benner (4:11)

Oh, no kidding.

They don't ask you to test at any intervals or once a day or anything like that?

Claire (4:17)

No.

No.

Not not as a type two.

You just you know, I was just sort of given the medication and said, you know, see how you go.

You have a an annual blood test and an annual review.

Claire (4:27)

They check, you know, how you're doing and everything.

So I was sort of ticking along as you do until last year.

At the end of twenty twenty four, my dad passed away, and and it was quite a difficult time.

And then in February, I had a blood test.

My h b a one c was a little bit higher, and in fact, I've got my my blood results just to give you a bit of it's a strange journey, really.

Claire (4:58)

So in February 2025, my h b a one c was 58, which is seven and a half Mhmm.

Seven and a half percent for America.

So I it put me in the category that I I could actually, under the NHS, start Mounjaro as alongside metformin.

For me, that was a win.

Obviously, Mounjaro was a new drug.

Claire (5:19)

I was I was overweight.

I was really thinking this is this is a great thing.

Prior to that, in July 2024, my h b a one c had been 45, so much lower, six point three percent.

So it was generally going up.

But I kind of put it down to I guess it was it was it was Christmas.

Claire (5:39)

My dad had passed away.

It was it was it was a difficult time.

Scott Benner (5:42)

Yeah.

Claire (5:42)

So, you know, diet hadn't been at the forefront of my mind.

Started Mounjaro.

Great.

Mounjaro's you know, in The UK, it it's really hard to to to fit the criteria on the NHS.

It's really difficult.

Claire (5:57)

Obviously, we have such a different health care system to you guys.

I was ticking along nicely on that, you know, Mounjaro and the metformin.

I was taking a metformin tablet once a day and and taking Mounjaro until the summer.

So I then had a h b a one c done because this is really this is where it it's quite interesting.

In June 2025, so six months sort of five, six months after starting Mounjaro, and my h b a one c had dropped down from 58 to 43.

The DKA Experience

Claire (6:28)

So, you know, the manjari was doing its job.

Mhmm.

I was losing a bit of weight.

I was everything was going great, and I I was happy.

And I think I probably by the end of August, probably that was probably when the DKA started, but obviously had no idea.

Claire (6:45)

Because I remember losing three pounds one week, and I was I was a steady losing a pound a week.

I was like, oh my gosh.

I lost

Scott Benner (6:52)

three pounds.

Happening.

Yeah.

Claire (6:55)

I I I I actually think I I I sort of had tears in my eyes.

Like, this is great.

You know?

This is I've lost three pounds this week.

You know?

Claire (7:04)

I've not done anything differently.

And then, you know, the weight loss continued a bit like that.

So it's sort of three, two pound the following week.

And we actually went away mid September to to New Yorker.

And, you know, I look back now, and I and I'm so grateful I didn't end up in hospital.

Claire (7:24)

I I ticked till I felt a bit odd at times on holiday, and but I I used to drink a lot of water because I was on Mounjaro.

And and and and everyone tells you when you're on Mounjaro, you gotta keep hydrated.

You know?

Scott Benner (7:36)

Eat protein, stay hydrated, lift weight.

Right?

Claire (7:39)

Yeah.

Scott Benner (7:40)

Yeah.

Claire (7:40)

Yeah.

It slows your digestion down.

You know, you must eat.

You must drink lots.

So I think I've sort of conditioned myself to drink all the time, and I guess I thought that's where the thirst was coming from.

Claire (7:52)

Yeah.

You know, I'm just so used to drinking a lot each day.

You know?

And I knew I was drinking more than than normal, but, again, I put it down to the Mounjaro.

And we went on holiday to Majorca for five days with friends, and at times, I did feel a bit odd.

Claire (8:09)

But I just I just thought this you know, I don't know what's going on here.

Scott Benner (8:13)

Just kept going.

Claire (8:14)

I remember yeah.

Just kept going.

And I think one of the things I'm quite a fit person.

I walk every day with my dog, And I remember saying to the people I was on holiday with, I don't know what's happened to my fitness this holiday because I was walking up hills, getting really out of breath

Scott Benner (8:29)

Mhmm.

Claire (8:30)

Like, which which was unusual for me because normally I could hold a conversation walking up a hill and things, and I was thinking, gosh.

I'm blowing.

You know?

Anyway, we we came home.

You know?

Claire (8:41)

Everything was good.

I actually work at my local doctor's surgery, which is a desirous thing as well.

So where where I'm a patient, I actually work there as well.

Just a few little things were starting to stack up a bit.

I just saw at times, I felt really odd.

Claire (8:57)

And, you know, and then I guess I would have a meal and and, you know, it would pass, and, you know, I'd wake up the next morning and go again.

Right.

Scott Benner (9:05)

And then

Claire (9:06)

and then I'd have then I'd have a few odd moments, but I sort of went to see the the practice nurse at at my surgery, and she she was like, this is odd.

She'd pricked my finger, and and lo and behold, I was sort of in the twenties.

And she was like, this is bizarre.

You know?

I don't know why your blood sugars would be this high.

Claire (9:27)

So she she had a Libra in the cupboard.

They get a few Libras from from the reps from Abbott.

Right.

So she's like, let's stick let's stick one of these on you and see how you go and see what happens.

And so overnight, they were sort of heading up to sort of 28.

Claire (9:43)

And by the following morning, my I went into work, and my ketones were four and a half, five.

They were like, you need to go to hospital.

Scott Benner (9:53)

So Did no one say maybe this isn't type two diabetes?

Claire (9:59)

Not at this time.

No?

At that point, I think they were just so confused.

Yeah.

I think they were so confused because I was also on Mounjaro as well.

Claire (10:09)

And I think because I'd had good bloods in June, they were like, this this is weird.

You know?

It's it's it's a bit of an anomaly, and and I think they kind of thought my blood sugars would come down.

Scott Benner (10:21)

Right.

Right.

Claire (10:21)

You know, maybe I'd eat it.

And they were like, are you following a keto diet?

You know?

Oh, everybody just kinda

Scott Benner (10:27)

kept thinking you ate something.

Claire (10:29)

Yeah.

Yeah.

Yeah.

Yeah.

Scott Benner (10:30)

Yeah.

Something happened.

Claire (10:31)

Exactly.

It was it was bizarre.

So

Scott Benner (10:35)

What was the highest your blood sugar was when you had that Libre on before you went to the hospital?

Claire (10:40)

The sort of 26, 27.

Scott Benner (10:42)

Oh, gosh.

Like, well over, like, 400.

Yeah.

Like, four fifty, maybe more.

Okay.

Claire (10:47)

I gotcha.

Which I think even at that time, even I was thinking, god.

I I in my head, I thought it was the manjaro.

I was like, gosh.

What what is manjaro doing to my body?

Scott Benner (10:57)

You thought it was Can it?

It was making your blood sugar go up?

Claire (10:59)

Yeah.

Which which I now know.

I'm I'm a little bit more educated and Right.

Right.

And the doctors and the doctors at the hospital helped me because I I just thought, god, this is terrible.

Claire (11:08)

What what have I done?

And I came home, and it it it was bizarre.

They said, oh, you need to go to a and e here.

They they couldn't book me into the hospital because, you know, if it if it was DKA, it's it's considered a medical emergency.

Mhmm.

Claire (11:21)

But I kinda took myself home, caught myself because I in terms of what I've read, I I probably was the wellest person with DKA you've ever met.

And I kind of came home.

I was like, I'm gonna get my Kindle.

My husband runs his own business, and he was actually planning on going away the next day.

He was away to Ibiza.

Claire (11:42)

And I thought, I don't I don't really he doesn't need to come.

You know?

No one needs to come.

I'll just get myself to hospital.

So I actually got a taxi to the hospital.

Claire (11:52)

Off I popped on my own, sort of sat in got to the hospital, triaged, sat in the waiting room.

So I I got through to the the second triage because you're kind of mini triaged, and then they just moved me along to another waiting room.

By the time I got in the second triage room, I kind of had an idea when they were putting cannulas.

I think that's where they took my blood gases.

And this lovely doctor said to me, you know, you you're in something called diabetic ketoacidosis.

Claire (12:25)

He said we we need to get you around to.

And I was I was just mortified.

So I was like, what?

So, obviously, I was they offered me a wheelchair, and I was considering I've walked into the hospital, I'm quite happy to to walk around to recess.

So I felt such a fraud, you know, to be sat there, all these people rushing around me, getting me hooked up to drips and and everything.

Claire (12:48)

So I think even then, I still didn't realize the seriousness.

I didn't really know what DKA was

Scott Benner (12:53)

Mhmm.

Claire (12:54)

At that time.

Scott Benner (12:55)

I

Claire (12:55)

was treated, and then I was moved to a ward.

I spent two days on the ward, obviously, on a trip, and then eventually they moved me onto injections, insulin injections.

I did at that time, they didn't know still whether I was an insulin dependent type two or whether I was a type one.

Mhmm.

Or really what was going on.

Claire (13:16)

So they took antibodies at that time, but they take three weeks to come back.

Scott Benner (13:20)

Okay.

Claire (13:21)

The doctor, when I left the hospital, she said, you know, we don't know what's going on.

We'll we we need to wait for antibodies.

But regardless, your c peptide is is very low, which tells us your body's not producing insulin.

So for now, insulin is the right treatment, and and we'll and then we wait for the antibodies to come back because, I guess, there are insulin dependent type twos.

I think my

Scott Benner (13:45)

bit Sure.

Claire (13:46)

My my biggest concern was, you know, that Mounjaro had caused all of this.

But every doctor that I spoke to, they were like, not.

You know, really, manjaro should have helped with your blood sugars.

It it it lowers.

It it's a treatment

Sponsor Break

Scott Benner (14:00)

on it.

I'm imagining it probably stretched out your situation.

You probably got to you probably got to DKA slower because of it.

I mean, how much weight did you lose?

I'm opening myself up for you to say stone and for me not to know what it is.

Scott Benner (14:12)

Right?

Go ahead.

Let's talk about the Tandem Mobi insulin pump from today's sponsor, Tandem Diabetes Care.

Their newest algorithm, Control IQ plus technology and the new Tandem Mobi pump offer you unique opportunities to have better control.

It's the only system with auto bolus that helps with missed meals and preventing hyperglycemia, the only system with a dedicated sleep setting, and the only system with off or on body wear options.

Scott Benner (14:40)

Tandem Mobi gives you more discretion, freedom, and options for how to manage your diabetes.

This is their best algorithm ever, and they'd like you to check it out at tandemdiabetes.com/juicebox.

When you get to my link, you're going to see integrations with Dexcom sensors and a ton of other information that's gonna help you learn about Tandem's tiny pump that's big on control.

Tandemdiabetes.com/juicebox.

The Tandem Mobi system is available for people ages two and up who want an automated delivery system to help them sleep better, wake up in range, and address high blood sugars with Autobolus.

Scott Benner (15:21)

I used to hate ordering my daughter's diabetes supplies.

I never had a good experience, and it was frustrating.

But it hasn't been that way for a while, actually, for about three years now because that's how long we've been using US Med.

usmed.com/juicebox or call (888) 721-1514.

US Med is the number one distributor for Freestyle Libre systems nationwide.

Scott Benner (15:49)

They are the number one specialty distributor for Omnipod Dash, the number one fastest growing tandem distributor nationwide, the number one rated distributor in Dexcom customer satisfaction surveys.

They have served over one million people with diabetes since 1996, and they always provide ninety days worth of supplies and fast and free shipping.

US Med carries everything from insulin pumps and diabetes testing supplies to the latest CGMs, like the Libre three and Dexcom g seven.

They accept Medicare nationwide and over 800 private insurers.

Find out why US Med has an a plus rating with the Better Business Bureau at usmed.com/juicebox, or just call them at (888) 721-1514.

Scott Benner (16:39)

Get started right now, and you'll be getting your supplies the same way we do.

Weight Management and UK Healthcare (NHS)

Claire (16:43)

Yeah.

So no.

I I I could tell you so I had lost about two stone, which is about 28 pounds.

Mhmm.

So but I previously lost two stone by myself, so I'm I'm kind of sort of full stone lighter than I was a few years back.

Scott Benner (16:59)

Okay.

But

Claire (17:00)

Manjaro just just gave me that final push, really.

Scott Benner (17:03)

Yeah.

Are you still losing weight today?

Claire (17:06)

No.

Unfortunately not.

So I I can't take Mounjaro.

It's it's not licensed in The UK for type one diabetics.

Scott Benner (17:13)

They don't have Zepbound there?

Claire (17:15)

No.

They at the moment, they're I'm I'm about to start a pump, which obviously I'll I'll get on to all of that in a minute.

So but, yeah, they won't let me have that.

They just keep saying it's it's it's not licensed.

Scott Benner (17:27)

For type ones?

Claire (17:28)

For you to take mug for type ones.

It's a treatment for type twos Yeah.

But not for type ones, so not to take alongside insulin.

I think it will come.

I think reading you know, I read a lot of information about diabetes, and I know that obviously and I think there are some people in The UK that can get it, I think, privately.

Claire (17:50)

Mhmm.

If you wanna pay privately for it, then, you know, you can.

But you it would involve me having to pay not only pay for the drug, but also probably pay to see a consultant to be under to to obviously guide me because it's gonna change my insulin regime Right.

Which obviously.

So it's just a bit complicated.

Scott Benner (18:10)

Yeah.

Yeah.

Yeah.

I think The UK is making it difficult because I'm looking it up right now.

So Zepbound's not available in The UK, which is, by the way, just all Zepbound is is Mounjaro.

Claire (18:20)

Yeah.

Yeah.

It's a tablet form.

Is that right?

Scott Benner (18:22)

No.

It's also it's the same injectable.

It's just the

Claire (18:25)

Okay.

Scott Benner (18:26)

Over here, basically, what happened was they made Mounjaro, and they were like, this is for type two diabetes.

So they push it through the FDA that way.

And the same time they're doing that, they're like, hey, everybody's losing a bunch of weight.

Why don't we put one of these through testing as a weight loss drug?

And then they have to call it something different.

Scott Benner (18:42)

Why?

I have no idea.

It's stupid.

Claire (18:44)

Right.

Okay.

Scott Benner (18:45)

You guys just don't seem to have it.

So you No.

It says the MHRA pro products listing for tirzepatide shows Mounjaro presentations in The UK, not Zepbound branded ones.

Claire (18:56)

There's really strict criteria at the moment

Scott Benner (18:59)

because you for You'd like it back.

Mounjaro.

Is that right?

Claire (19:01)

Absolutely.

Absolutely.

I would I would go on it again in a heartbeat now given that I think since leaving hospital at the beginning of October, I've I've put on nearly a stone, you know, which is 14 pounds.

Scott Benner (19:12)

14 pounds.

Yeah.

Claire (19:13)

And I'm actually better.

I do you know what?

I was listening to one of your podcasts.

I I can't tell you which one.

Actually, it was one that's just dropped out this week, the the wandering something.

Claire (19:22)

I'll think of it soon.

It was a two part episode with a young girl, and you got me thinking about thyroid function because I've been trying really hard to lose weight just recently, and I'm not losing weight at all Mhmm.

Even giving it a good shot.

And it's making me think, gosh.

I I I don't think I've ever had my thyroid checked.

Scott Benner (19:46)

Listen.

I'll tell you what Chad GPD said.

Yes.

The UK does prescribe GLP one type medications for weight management.

The confusion is that access is real but limited, especially on the NHS.

Scott Benner (19:58)

In The UK, NHS guidelines say the weight management medicine with evidence for NHS use include, oh, semaglutide, tirzepatide, another one, NHS obesity guidance specifically notes the semaglutide and tirzepatide may be prescribed through specialist weight management services when appropriate.

So it sounds like you have to go to a doctor who just handles this.

This episode of the Juice Box podcast is sponsored by the Eversense three sixty five.

Get three hundred and sixty five days of comfortable wear without having to change a sensor.

When you think of a continuous glucose monitor, you think of a CGM that lasts ten or fourteen days.

Scott Benner (20:41)

But the Eversense three sixty five, it lives up to its name, lasting three hundred and sixty five days.

That's one year without having to change your CGM.

With the Eversense three sixty five, you can count on comfort and consistency 365 a year because the Eversense silicone based adhesive is designed for your skin to be gentle and to allow you to take the transmitter on and off to enjoy your shower, a trip to the pool, or an activity where you don't want your CGM on your body.

If you're looking for comfort, accuracy, and a one year wear, you are looking for Eversense three sixty five.

Go to eversensecgm.com/juicebox to learn more.

Claire (21:28)

Yep.

You gotta jump through hoops as well to get it.

You have to yeah.

I think that your BMI needs to be in a certain category, and then you need to have a number of other health conditions as well.

Okay.

Claire (21:38)

So if you're if you're not getting it for type two, you need to either have, a card of cardiovascular, high blood pressure, anything that obviously is also impacting your weight.

Scott Benner (21:48)

For Mounjaro by the way, that's where the confusion is.

They don't sell Zepbound.

They just sell they sell Mounjaro, but they prescribe it for weight loss.

And so Yeah.

It says NICE.

Scott Benner (21:58)

What is NICE in?

Claire (21:59)

NICE guidelines.

They're they're they're the guidelines that I think they're they prescribe under.

Scott Benner (22:04)

Yeah.

Recommended for managing overweight weight and obesity in adults.

And then NHS England says it is being introduced in phases starting through NHS specialist weight management services under interim commissioning guidance.

Oh, jeez.

Yeah.

Scott Benner (22:18)

So you can get it.

You're just gonna have to hustle for it somehow.

Your weight still makes you eligible, you think?

Claire (22:24)

Probably not now.

I probably don't fit the criteria anymore for to have it as as weight loss

Scott Benner (22:31)

Okay.

Claire (22:31)

Possibly possibly for diabetes.

Scott Benner (22:34)

It will definitely help you.

So I'll tell you what a lot of people do here is they end up with a dual diagnosis of type one diabetes and insulin resistance.

And then Right.

Then they get the GLP for the insulin resistance, which, by the way, is massively helpful for a lot of people with type one as well.

Claire (22:50)

Well, so I'm still taking metformin to help with my insulin resistance.

I think that that's the consultants.

He said carry on taking.

A, it'll help you a little bit with with your weight and also with insulin resistance.

But I've been on metformin for years, and I just don't feel like it it does anything for me.

Claire (23:09)

I think it possibly helps with my insulin resistance a little bit.

Yeah.

It's difficult.

It's difficult.

Scott Benner (23:15)

Yeah.

Well, I'm sorry that's happening like that.

That sucks because I know it just when you find something that's helping you, it's

Claire (23:21)

just Oh, it's massive.

Yeah.

It's mean, over here in The UK, we're we're we're probably a couple years behind, but but Mounjaro is is becoming sort of life changing for many people Yeah.

You know, at the moment.

Scott Benner (23:34)

I I listened.

It changed my life, and my wife just hit a, I I don't know what we would call it, like, a a goal with her weight that I don't think she thought she was ever gonna see in her life.

Yeah.

And and she's just super excited.

Like, my my wife, you know, 52 years old, she was, like, texting me, like, screenshots of her weight of her app that you know, and she was just so excited.

Claire (23:54)

So So I got down to a weight.

Obviously, unfortunately, a lot part of it was down to DKA, but, you know, the small wins.

I got down to the lightest I've been in twenty twenty six, twenty seven years.

Scott Benner (24:06)

Yeah.

Did you feel can you talk about how differently you felt at the lower weight?

Claire (24:11)

Oh, amazing.

I felt I felt amazing even, you know, even though I was obviously terribly unwell at that time.

But like you say, the Mounjaro was probably slowing things down for me.

Scott Benner (24:20)

Mhmm.

Claire (24:20)

But to be able to walk in shops and buy clothes that, you know, that I could pick up and be, this is great.

Scott Benner (24:26)

Yeah.

Well And

Claire (24:28)

and then I'm just back on this battle now, which I I don't think the insulin helps with with losing weight either.

So, you know, you're fighting all the time.

Scott Benner (24:36)

Are you getting low a lot?

Claire (24:38)

Not really.

I'm I'm kind of I'm I'm in a period of I'm actually suffering with really bad highs at the moment.

I've I've had a bit of a change over the last few days.

I'd kind of got things quite under control because I'd increased my activity, which was affecting my insulin.

So I'd reduced my insulin a little bit, and that has really helped me because I've I've sort of started eating healthier and going to the gym, which hence, I've thought, you know, to start shifting some weight, and the scales just are not moving.

Claire (25:06)

I mean, I'm not putting on weight, but I'm not losing weight either.

So it's super frustrating.

I'm not suffering with massive lows, really, in that sense.

Scott Benner (25:18)

I mean, listen.

It's tough because, like, you know, I I never wanna tell people, like, you know, insulin causes weight gain.

I I don't I actually mostly don't think that's how it works.

I want people to take the amount of insulin they need.

Right?

Claire (25:31)

Yeah.

Scott Benner (25:32)

But, you know, and insulin is soaring what you're eating.

So there's a couple of ways.

Like, if you're if you're taking in more calories than your body needs, and then you're gonna gain weight.

And Yeah.

And if you're getting low a lot and therefore eating a bunch more than you should be eating, you're gonna gain weight there too.

Scott Benner (25:50)

And I think sometimes Yeah.

Those situations cause people to say insulin makes me gain weight.

So, I mean, it's not lost on me that there are people with insulin resistance who gain weight, and and they're not taking in too many calories or not having a lose.

Like, it's just a very complicated hodgepodge of possibilities, you know.

But but did you say you're wondering about your thyroid too?

Scott Benner (26:12)

Did you go through the symptoms and and end up thinking maybe I have this as well?

Claire (26:16)

Yeah.

So I I mean, bizarrely yeah.

And one of the doctors did a long time ago when I first came out of hospital, and was I I was chatting to one of our GPs, and she said, oh, you know, have you ever been checked for your thyroid?

And I was like, no.

She said, oh, you know, you perhaps perhaps should do that at some point.

Claire (26:36)

And, obviously, life's just got in the way a bit, and I've been trying to manage my diabetes.

And I've only felt this year that I'm able to start managing that the way I want to manage it and and be positive about it.

So but the trying to lose weight, you know, the fact that I've gained a few pounds and then I'm trying to lose them and I'm not losing them, which probably was gonna you know, to answer one of your questions, nobody there's no history of top pieces in my family.

Scott Benner (27:03)

Right.

Claire (27:03)

Absolutely none.

However, my my dad, who mentioned passed away in

Scott Benner (27:09)

Yeah.

I'm sorry.

Claire (27:10)

December 24, he had hyperthyroidism.

Oh.

He obviously I didn't really know much about it.

He was diagnosed in his forties, and he took, they call it thyroxine over here.

It's very similar to what to what you guys take over there.

Claire (27:26)

You call it syn Synthroid?

Or Yeah.

I googled I googled it the other day.

It's the same thing.

So, yeah, dad had that.

Claire (27:33)

So he was diagnosed in his forties.

So I it's making me now think, gosh.

It's you know?

I I don't think I've had my thyroid checked for about ten years.

Scott Benner (27:41)

I mean, you should, and and you should listen to the episode.

It's it's episode four It'll kinda lay out for you with a it's a doctor that I did it with a while ago, but the information's also really good.

Like, if you you don't wanna get stuck in a situation where you have thyroid symptoms, but the doctor's telling you that you're in range because many doctors will consider a a thyroid level, a t a TSH level much higher than they should as being in range.

Claire (28:07)

So Okay.

Scott Benner (28:08)

Yeah.

So just get the you know,

Claire (28:10)

get see what they are.

The Emotional Impact of Late-in-Life Diagnosis

Scott Benner (28:10)

Yeah.

But you know what?

You said something a minute ago.

I don't wanna get I don't wanna lose.

You just got to a point where you felt, would you say, comfortable or happy with how it's going?

Scott Benner (28:19)

Like, talk more about the emotional side of all this and and what it's like to try to hammer it all out and get it into a into a rhythm that makes sense for you.

Claire (28:27)

I mean, I think after the initial shock of you know, I didn't realize that adults at at 49 I was 49.

I'm I'm 50 now.

We were diagnosed with type one diabetes.

Obviously, you know, I I I left hospital thinking, well, it's gonna be type two, and, you know, my body's not making insulin.

But, actually, I did get my antibodies and and and was was really quite strongly positive.

Claire (28:50)

So I was obviously then given the diagnosis of type one, which I think I think I was so shocked, you know, absolutely shocked.

I have no history of anyone having diabetes in my family and the emotional side.

I go from being sort of happy.

Are you still there?

Scott Benner (29:11)

Yeah.

Yeah.

Claire (29:12)

I thought I'd lost you then for

Scott Benner (29:13)

Should I?

About every every two sec I'll I'll make a noise in the background just in case.

That doesn't happen to you.

Claire (29:18)

My phone was was beeping slightly, and I thought, oh, gosh.

It's cut off again.

I I go from being very grateful that, you know, perhaps that I've had those forty nine years, and and I've had it much later in life because I watch, you know, a lot of people with with young children and, you know, more than one child.

And I think, gosh, the the the burden, a, being pregnant.

I've had three children.

Claire (29:41)

So you know?

And and they're all adults now.

So I don't have the burden of trying to look after

Scott Benner (29:48)

You don't have the burden of looking after little kids while you're figuring all this out.

But are you trying to this might be the saddest thing anybody's ever said.

Are you like, I've I've lived a good life already.

It's okay if this happened now.

Is that where you're at?

Scott Benner (29:57)

I didn't wanna put words in your mouth, but it felt like you were saying that.

I wasn't sure.

Claire (30:01)

I don't mean it in that sense.

Scott Benner (30:02)

I think

Claire (30:03)

I just I've I've I've I've kind of met a few people along the way, and I and I listened to it.

I read a lot, and I've listened to a lot of podcasts, and, you know, and I think, gosh, you know, imagine trying to get through navigate your teenage years and maybe try to navigate pregnancy and giving birth with with all this going on as well.

I think I think what I'm grateful for at the moment is that I've probably had the time to just concentrate on myself.

Makes sense.

Really have anyone.

Claire (30:28)

That's what I mean, I think.

I just don't you know, I I went through a period.

2024, my dad was was really poorly and helping my mom look after him.

So, you know, that that was difficult time.

So I kinda look back on difficult times and think, gosh.

Claire (30:44)

Imagine trying to manage diabetes as well as that.

Yeah.

So I think I'm just grateful for that.

And, you know, I think I'm I'm getting an insulin pump next week, which, you know, six months after diagnosis, there's people that have been waiting years under the NHS for Mhmm.

But I've just sort of fallen in at the right time because the NHS, there's a plan for every every there's a five year plan, I think, that started in 2023.

Claire (31:10)

K.

For every diabetic type one to be offered an insulin pump.

So I've just, at the right time, you know, had this diagnosis where tech technology just is is phenomenal.

Scott Benner (31:22)

Oh, for certain.

Let me tell you.

I just got an email from a listener recently about a new pump that is in testing.

Should I say which one?

Let's just say it's like MiniMed.

Scott Benner (31:34)

Okay?

And Okay.

They are over the moon about how it works.

Like, super super excited about how it works.

I think there's a lot of stuff coming over the horizon with these algorithms and, you know, stuff to be excited about.

Meal Prep, CGMs, and Pump Choices

Scott Benner (31:47)

Can I ask what pump you're looking to get?

Claire (31:49)

So I'm I'm having an Omnipod.

So I had an Omnipod five.

Scott Benner (31:54)

Okay.

Claire (31:55)

Under the NHS, you can choose.

Mhmm.

So you you get given a choice.

So I was down to I had a choice of about four or five.

Yeah.

Claire (32:03)

So you have to choose, and whichever you choose, you are stuck with for the next four years, essentially, except for the Omnipod because, obviously, there isn't that big outlay.

Scott Benner (32:13)

Around here, you get it through, like, a pharmacy channel.

So then it's sort of, like, if you wanted to switch, you just could.

Claire (32:19)

Yeah.

Right.

Whereas it's things are a bit different.

So I've gone for the Omnipod five.

The diabetic team sort of say to me that a lot of adults my age will go for something like that.

Claire (32:29)

Obviously, I'm not self conscious about things on my body, really.

I'm I'm more I'm more here for the whatever works best for me.

Yeah.

You know?

But I I I do understand younger people would look at that and some you know, why they wouldn't want it.

Scott Benner (32:43)

Because a lot of younger people will say, well, there's no tubes on it, I can hide it under my clothes and stuff like that.

Yeah.

Yeah.

It's interesting to listen to you go through the process that I've, you you know, just heard so many people over time with, like, you know, it's either they say, well, I don't want something on me, or they say, I just want it to work.

This must be better to have happened to you when you're older because I can imagine what it would be like if you were younger, and younger people say, well, it's better to get it when you're younger because then you don't know any better.

Scott Benner (33:07)

Everybody always sees the other side of it where the value would be or or how much better they might like it or not like it.

A bunch of different stuff.

Your dog okay?

Claire (33:18)

Yeah.

I'm so sorry.

I've just had him my guest day delivery.

Scott Benner (33:21)

Well, that's why was saying something that's what usually happens is something gets delivered and the dog goes crazy.

Claire (33:25)

He's not the biggest fan of did you what did you have

Scott Benner (33:30)

bring in?

Claire (33:31)

Happened.

I'm like, oh.

Scott Benner (33:32)

What got delivered?

Claire (33:34)

It no.

No.

It's fine.

I've just left it.

It's it's a Gusto parcel.

Claire (33:38)

So I don't know.

It's like a meal prep.

I don't know if you guys have it in America.

Sure.

We we get it.

Claire (33:42)

They deliver, like so I get everything delivered for the next four days dinners.

You have to cook it, but it's it's it's a it's a great thing here in The UK.

We have Gusto, and we have HelloFresh.

Scott Benner (33:53)

Yeah.

Comes it comes, like, on dry ice.

Right?

You just kinda you warm it up afterwards, or you actually, you can prep it too.

Right?

Scott Benner (34:00)

Like, it's

Claire (34:01)

You you actually prep it.

Yeah.

It's just all the ingredients for four meals that I've I've chosen for the week.

Scott Benner (34:07)

So This is exciting.

Is this a thing you can afford once all your kids leave?

Is that is that what happens?

You have, like, all of a sudden, you have money?

You're like, oh god.

Claire (34:16)

There there is a there is a degree of but there's still four of us.

So I've still got two adult children at home, only one of them slept.

Scott Benner (34:22)

Oh, you gotta tell them to get the hell out.

That's enough already.

Yeah.

But but

Claire (34:27)

do you know what?

It's a it's a great thing for when you're trying to eat healthy because myself and my husband, we're classic overeaters.

Like, we make far too much food.

Mhmm.

With with this, there's no leftovers.

Claire (34:39)

So it's literally enough food for four people, four meals, four people.

Scott Benner (34:43)

And that's it.

Claire (34:45)

There's no leftovers.

There's no more to eat.

So, you know, it stops us overeating massively.

Scott Benner (34:51)

I know.

That's that's great that you yeah.

That I think that's interesting that you that you found something that helps you like that.

Yeah.

Portion size is always confusing to people.

Scott Benner (34:59)

And I when I do those bolus four episodes with Jenny, she brings it up all the time.

She's just like, you know, you know, a portion.

Are we talking about what a portion is on the nutritional label?

Or are we talking about what people put on their plates?

You know?

Claire (35:12)

So Exactly.

And, yeah, massively, you know, over eaters.

Easy to just keep developing it on or going back for seconds.

Scott Benner (35:21)

Are you using a CGM now already?

Claire (35:24)

Yeah.

So I have a Freestyle Libra, the two plus.

I'm not I'm I'm I'm kind of at the moment, I'm I'm really intrigued to see how it's gonna work on with my Omnipod.

It's a massive signal failures with it recently.

I you know, I'm constantly I don't I don't know how other people get on with it because I'm constantly having to scan.

Claire (35:44)

It loses signal all the time.

Scott Benner (35:46)

Oh, do you have Dexcoms in The UK too?

Claire (35:50)

The the the we do, but they're they're another you have to jump through hoops to get those as well.

Oh, really?

Okay.

They're they're they're not as widely available as as Freestyles unless you have unless you have a pump that only works with the Dexcom.

But I have seen you know, there's some people I've kind of watched a lot of diabetics on TikTok and things like that.

Claire (36:13)

And, you know, lots of people not raving too highly about the g seven either.

So Yes.

I think it's just

Scott Benner (36:19)

it's super interesting people's experiences with devices that are, you know, mechanical devices that are, you know, interacting with, like, human flesh.

It's like I I I say this all the time, 100% true.

My daughter puts on a g seven.

They almost never fail, and they last right up to the ten days plus the extra time.

It just Okay.

Scott Benner (36:43)

I don't and then other people you see, like, I never get past day six.

I never get past day seven.

Like, you know, or whatever.

Like, I'm wondering when they come to the fifteen days.

I think the fifteen days are probably gonna work for her as well.

Scott Benner (36:54)

Yeah.

I think there's something about her and it, you know, that went together.

I do you know, Dexcom did have a couple of issues more recently, but I do know they're they're addressing them.

I think I am allowed to say, like, I'm on an advisory council right now.

Like, it's a short term advisory council for Dexcom.

Scott Benner (37:12)

They are putting a pretty comprehensive plan together about, you know, dealing with a couple of topics that that we brought up, in the council and, you know, things that we thought they should be looking at.

So, we'll see.

This stuff's always

Claire (37:25)

It's interesting.

Changing.

Scott Benner (37:26)

Yeah.

Yeah.

Claire (37:27)

I think here, I can but by the time I if if I were to raise my issues with my Libra, that's how I would get a Dexcom.

Mhmm.

I just need to say, look.

This is failing all the time for me.

You know?

Claire (37:38)

And and then I can I think my diabetic team can apply for funding for me to get a Dexcom?

So that might be a road I go down, but I think I just need to see how the the Omnipod how they get on Yeah.

Which obviously I'm massively nervous about sort of starting.

I'm just sort of getting to grips with how diabetes works, and I'm more confident with correction doses and things.

Scott Benner (38:00)

Let's dig into this six months with with insulin.

But first, let me just say, Libre is not a sponsor, so I don't feel any reason to play devil's advocate for what you said.

Okay.

But seriously, like, you've had so you've had this diagnosis for, like, a type one diagnosis for how long?

Claire (38:18)

Six months.

Scott Benner (38:19)

Six months.

Okay.

Did it first of all, did just getting the diagnosis change something, or was it the is it more about the massive need for insulin suddenly striking you?

Like, did you have time to think about the psychological part of what just happened to you, or is it more about figuring out insulin, keeping yourself going, getting through all this stuff, and and trying to find firm footing?

Claire (38:39)

Yeah.

I think I think all of those things I think the diagnosis was was a massive shock.

I, you know, I didn't know where that had come from sort of learning, obviously, to look after myself.

My I think my husband, my kids, my middle daughter is a children's nurse, so she had a big understanding of what diabetes is.

But my husband has been absolutely amazing.

Claire (39:03)

He's, you know, he's given me the opportunity to leave my job to try and get on top of things this year.

So I left my job in February.

I'd I'd done the same job for fourteen years, but, you know, I was a bit fed up anyway.

And he was just like, do know what?

Just have a break.

Claire (39:18)

Just have a break for a bit and concentrate on you.

Scott Benner (39:20)

Yeah.

Claire (39:21)

But at times, I just I suppose I just feel a bit frustrated.

He he doesn't get it.

I don't think he really understands.

And, you know, you see all the classic memes of people saying, oh, okay.

Oh, do you need to take a shot?

Claire (39:34)

You know?

Mhmm.

People people really don't understand diabetes.

You know?

They really don't understand the difference between being high and low and the different treatments and how you're gonna manage it and the different decisions you've gotta make.

Claire (39:48)

It it's just massive.

And, you know, I think even my family, you know, my mom, bless her.

She's you know, in the early days, she was so you're gonna have to take those for the rest of your life?

Mhmm.

You know?

Claire (40:00)

What what about that thing on your arm?

If gotta you wear that all the time.

Scott Benner (40:04)

Yeah.

Oh, I just I by the way, just yesterday, when we were out shopping, I guess I had to use my driver's license, and the the person behind the register was like, oh my god.

Is that's you?

And I was like, yo.

Yeah.

Scott Benner (40:15)

Yeah.

And I I was like, I've lost a lot of weight on, GLP medication.

And you look terrific.

Thank you.

Next day statement.

Scott Benner (40:22)

Do you have to take that forever?

Right away.

Like, that's the like, it just pops into people's heads.

Like, I'm like, yeah.

Probably.

Scott Benner (40:29)

And they're like, oh.

Then they act like that's a problem.

And I go, I'm like, no.

I'm good.

I'll I'll take it.

Scott Benner (40:35)

Like, I I'm I'm happy.

Claire (40:36)

Yeah.

I'm gonna take it.

Scott Benner (40:37)

Yeah.

It's interesting how that pops into people's heads.

I don't think it's just about diabetes is my point.

I think anytime you tell somebody you're on a medication, the inference to them is if it's not a medication that stops at the end of ten days or something, then that seems scary or odd or whatever.

I don't even know what exactly how it hits them.

Claire (40:56)

Yeah.

I've had a couple of of friends say to me, the thing on your arm, if you're gonna wear that forever, and and it and it does kind of hit you then at the like, yeah.

Actually, yeah.

I I I will.

I guess forever.

Claire (41:11)

Yeah.

I hadn't hadn't really thought about that till you mentioned it, but, yeah, I probably will.

Scott Benner (41:16)

Yeah.

But when I die, I'll have it on.

Yeah.

Yeah.

Like, 97 years old with my CGM.

Claire (41:22)

And and that's a bizarre thing as well.

I so when I was 16, 17, I was my boyfriend at the time was diagnosed as a type one diabetic, and I'm going back in I'm going back in the early nineties.

So I'm going back thirty thirty two years ago.

Yeah.

He was a twin, and at the time, twin brother had been diagnosed.

Claire (41:41)

And six months later, he was he was diagnosed.

I don't it wasn't a massive shock to his family.

Scott Benner (41:47)

By that point.

But Yeah.

Claire (41:48)

At that point and and so I I kind of I do know a bit about diabetes from then, although it's been thirty years.

And I but but back then, when I look back, I mean, I'd love to bump into him one day now, but purely because I'd just like to chat to him about how the technology's moved on.

You know?

I think, god, when I look back, he he used to just finger prick at meals.

And Yeah.

Claire (42:10)

Obviously, injects, and then, you know, he only ever finger pricked if he felt a bit odd and and whatever outside of those times.

So I do wonder, you know, and I know there's many people he he would be a couple years older than me now that have lived with diabetes for sort of thirty, thirty five years.

Yeah.

Crazy.

Finding Community and the Podcast

Scott Benner (42:29)

Well, you know, it's funny.

One of the follow-up questions I had in my head for you while you were talking was, does that feel when people don't understand it, does that make you feel lonely?

But now I got my answer because you're willing to talk to a boyfriend from thirty years ago.

So you you're you're looking for you're just looking for someone who gets it to talk to.

Claire (42:47)

Yeah.

I I think I definitely I I need some diabetic friends.

Yeah.

Scott Benner (42:52)

I I bet you do, actually.

Yeah.

Claire (42:54)

You know, I'm looking forward to getting to this pump start next week.

I went I went to a pump convention, actually.

I I convention might not be the right word, but you back in January, they they had all the pumps of pump suppliers at the hospital so you could go and meet them.

And, you know, it it was humbling for somebody like me that's been diagnosed for six months because there were people there, you know, that were in their fifties and sixties that have been diabetic for years and years, you know, the excitement for them to be getting a pump.

And I I I fit the criteria under the NHS for a pump because I suffer horrendously with dawn phenomenon.

Claire (43:29)

Mhmm.

So of you know, they call it fit to floor syndrome.

So I'll I'll give you an example.

Like, I went to bed.

The blood sugar's at seven and eight last night.

Claire (43:39)

I don't know what that equates to, but they were in range.

The that's a good range to go to bed on.

Yeah.

I I woke up this morning to that they'd risen through the night with with no rapid insulin on board to 15 Mhmm.

By the time I wake up in the morning, and that's just for me breathing in the morning.

Claire (43:58)

I literally don't listening to

Scott Benner (44:01)

Let me tell them a seven's a seven's, like, 01:26, an eight is 01:42.

And what did you go up to overnight?

Claire (44:07)

Fifteen.

Scott Benner (44:08)

Fifteen is two seventy.

Claire (44:13)

Okay.

Scott Benner (44:13)

Yeah.

Yeah.

So that's I mean, they've been meaning it more than doubled overnight.

Claire (44:17)

Yeah.

So I sort of doubling overnight without, you know, no food, nothing, just breathing.

And it's probably hormonal.

You know, I'm I'm a woman of a certain age, and I think that's been a a battle as well is is not knowing what's diabetes, what's hormonal, what's menopausal.

I don't really know what's going on, and I don't know whether I should be feeling the way I feel sometimes.

Claire (44:38)

And, you know, I think I had a chat with somebody recently, and they said, gosh.

It it must be you know, because I relate everything that I feel at the moment down to the menopause.

Oh.

And I'm like, yeah.

But Yeah.

Claire (44:51)

I I can't I can't I can't relate because I'm not sure whether it's diabetes or menopause.

I just have to weigh up and think, you know, I'm not sure.

Scott Benner (44:58)

I got yelled at online last night for not having enough menopause content.

So I I Yeah.

I promise to do some.

Claire (45:04)

Yeah.

Yeah.

I'm I'm I'm here for that cause it it's it would be interesting for me to listen to.

But, yeah, I don't sometimes know whether I'm feeling a certain way or whether it's hormonal or or anything like that.

But, yeah, I just my blood sugar so that that makes me fit.

Claire (45:20)

Everybody's telling me that the Omnipod's gonna do wonderful things for having this rise in the morning.

Scott Benner (45:26)

Well, I mean, the algorithm will try to get ahead of it, and it'll, you know, notice it going up and get after it.

So, I mean, there's a ton of benefit with that.

You just I think you'll end up loving it, honestly.

Claire (45:37)

I hope so.

Scott Benner (45:38)

Yeah.

Yeah.

And you listen to and if you and if it's not right for you, there are other pumps too.

You know what I mean?

So Yeah.

Scott Benner (45:45)

I hope the one you wanted works, but if not, keep looking.

Claire (45:49)

Yeah.

Yeah.

I will.

I will.

I'm Good.

Claire (45:52)

You know, I've had I've had it all delivered at home.

It's all very exciting.

So it's all been delivered last the end of last week.

So it's all set up, and I'm just ready to I have to have a couple of appointments for the pump start now.

Scott Benner (46:04)

Okay.

Well, can I tell you?

I have a really great series to get you ready for it.

Claire (46:09)

I've listened to it.

Oh, okay.

You're I'm I'm ahead of you.

Scott Benner (46:12)

Oh, okay.

Claire (46:12)

I've done your your bold beginnings, and last week, I I listened to all of your Omnipod five episodes.

Scott Benner (46:19)

Oh, cool.

Did you find it helpful?

Claire (46:22)

Really helpful.

Scott Benner (46:23)

Oh, good.

Good.

Good.

Claire (46:24)

You know, I've I love I love quite a lot of your episodes.

So, you know, there's lots of things I can relate to.

So, yeah, it's it's a it's a great podcast.

Scott Benner (46:33)

That's great.

My accent's not hard for you to follow?

Claire (46:36)

No.

I'm just kidding.

Scott Benner (46:37)

I'm teasing you.

Claire (46:38)

Not at all.

I do I do like it when, you know I I love that you do English.

You know, you you come across the pond as well.

So

Scott Benner (46:47)

Oh, yeah.

Claire (46:48)

I recently listened to there was a lady you had.

She's who works for the Daphne course.

Scott Benner (46:52)

Wasn't she great?

Claire (46:54)

Yeah.

So that was a great because I I'm actually doing the Daphne course in

Scott Benner (46:57)

June Okay.

Claire (46:59)

Here.

So that that's great.

Things like that.

It's it's just really helpful.

You know?

Claire (47:04)

And it it's helpful to hear that sometimes that you're just not alone.

There's other people having, you know, similar similar experiences.

Scott Benner (47:12)

Yeah.

No kidding.

I I listen.

Just on diabetes conversations, I forget the Daphne course.

I thought she was really a fantastic guest.

Scott Benner (47:19)

I I actually find myself wondering.

I hope she she'll come back.

Hope she'll hear this and come back sometime.

I had a good I had a really good time talking to her.

I felt like, it was a very nerdy diabetes conversation that that I enjoyed, quite a lot.

Scott Benner (47:31)

Yeah.

I know.

Look at me.

I'm almost British.

I said quite a lot.

Scott Benner (47:36)

That's right.

You're rubbing off on me.

Claire (47:38)

I feel like I've just rambled for the last hour.

Scott Benner (47:41)

No.

You're doing to know?

Stop it.

You're doing terrific.

Are you kidding?

Scott Benner (47:44)

Are you were are you nervous to do this?

Claire (47:46)

Oh, really nervous.

Really nervous.

Not told anybody, just my husband because I thought that way.

I'll only tell people if if when it comes out and it sounds okay.

Scott Benner (47:54)

You'll listen first.

Make sure they're allowed to hear it.

Claire (47:57)

Well, listen.

And then I and then I'm like, tell people.

Scott Benner (48:00)

I just did some I just went online last night.

I you know, sometimes I'm just sitting around at the end of my day.

And I I put up a post in my Facebook group, and I said, look.

Tell me one thing I do right, one thing you'd think I wish I'd do differently, and I'll answer a question for you.

During the course of those conversations, somebody, you know, talked about, like, you know, they wished I don't know.

Scott Benner (48:21)

In one situation, I would let I would have let somebody go on longer or something like that.

And I just Okay.

Claire (48:26)

You know,

Scott Benner (48:26)

I ended up saying to them, like, you know, it's it it really is just I have people on who don't ever do stuff like this.

Like, some of them take to it really easily and some of them don't.

Some of them need more prompting.

Some of them don't have as big of a story as far as time goes as you think and some of them don't have a skill for telling a story.

So sometimes they get their thought out and it's very short and like, well, there's nothing cinematic about that.

Scott Benner (48:51)

We're gonna have to stretch it out a little bit or we're gonna have to find another thing to talk about in it.

And in the end, like, I hope everyone realizes that, like, most of the people who come on this podcast have never done anything like this before ever.

Claire (49:04)

No.

Absolutely.

Scott Benner (49:05)

And I offer you no prep for it whatsoever.

And you you come on because you really wanna share your story or you're really looking for something or whatever.

And that's why I think the podcast ends working out so well is because Yeah.

I put you on my schedule and you need to show up.

I don't hold your hand reminding you, like, in four weeks, in three weeks.

Scott Benner (49:24)

And, like, I think it maybe pops up a week before and tells you and then, like, the day before.

And that's Yeah.

Pretty much it.

And then, from there, you know, people are coming on and and just, like, they're very nervous sometimes.

They're not practiced at this.

Scott Benner (49:39)

They maybe never will do it again.

But I really appreciate it because I think I think you should let everybody hear it because I think it's really valuable for you to sit down and tell your story like that, the the way you have so far.

Yeah.

Seriously.

Claire (49:51)

Thank you.

Scott Benner (49:52)

No.

Of course.

Claire (49:52)

I I I do I do want to share.

I think I think people, you know, need need to know that, you know, diagnosis at 49, 50, it it happens.

And and and it's not the end of the world.

It's, you know, it's it's just learning to live a different on a different path, really, finding a way.

Scott Benner (50:09)

Yeah.

What what's been the most difficult part about using insulin so far?

Was it scary?

Is it scary?

Claire (50:15)

If somebody had said to me twenty years ago, you're gonna have to inject yourself, like, six times a day, I think I probably would have gone absolutely not.

But, you know, a a Mounjaro I'd obviously was taking Mounjaro, so I was doing a weekly injection.

Because the the lady when I was in hospital, she she was showing me how to put the needles on and stuff, and she she was like, you you know how to do this?

I was like, yeah.

But I'm okay.

Claire (50:38)

Mhmm.

But it didn't didn't prepare me for the six times a day injections that I probably need.

Yeah.

But but I'm just you know, I'm getting on with it.

I'm I'm I'm my body looks battered and bruised in certain places.

Claire (50:51)

I'm exhausting every injection site.

Just my thighs are covered in bruises all the time.

I don't know why I seem to bruise so easily.

Scott Benner (50:59)

You guys don't have the sun there.

Maybe that has something to do with it.

You should get a sun.

Claire (51:02)

Yeah.

Yeah.

I'm sat in a darkened room at the moment because I didn't want I'd shut all the blinds so the dog wouldn't bark.

That didn't really work out for me, did it?

Scott Benner (51:12)

Well, hey.

Don't forget, don't forget to take vitamin d.

You know, people with autoimmune issues need, often need more vitamin d.

Listen.

I take actually, you just reminded me that I have to take my Zepbound today.

Scott Benner (51:23)

I was supposed to take it yesterday, I forgot.

But and I've been doing it for three years.

Right?

Certainly not as much as six times a day or what a person with type one goes through, but it still does.

Every week, I grab that needle, and there is part of you that you're just sort of like, okay.

Scott Benner (51:39)

I guess I'm gonna jab myself with this needle now.

You know what mean?

Like and even though, like you said, you just kinda get on with it and it's a thing you're almost accustomed to.

But still, you just as you're reaching for yourself, you're like, okay.

I don't know.

Scott Benner (51:50)

Nine times out of 10, it doesn't even hurt.

And then the one time it pinches or, like, the the liquid goes in, like, and hits a nerve or something, you're like, god damn it.

And it always is in the back of my head no matter what, and I'm only doing it once a week.

Claire (52:03)

That yeah.

And that's the other thing as well.

I I was diagnosed, obviously, end of September, beginning of October.

So I had a whole winter of covering myself up.

So I'm about to go into a spring summer here where, you know, more t shirts, more and, you know, you see more CGMs on the show and things.

Scott Benner (52:19)

Mhmm.

Claire (52:20)

You know, I have I've literally I've had one person ask me, what's that on your arm?

And and just to casually explain to them that I did read I watched something on social media last week that it was it was obviously very tongue in cheek, but a diabetic she somebody had asked her what it was, and she said, and they went, are you giving up smoking?

Yeah.

I'm giving up smoking.

People thinking it's an aid to help you giving up smoking, and he's just saying, I'm like, gosh.

Claire (52:45)

Am I gonna get people asking me questions like that over the summer?

Scott Benner (52:49)

Oh, yeah.

Sure.

Are you gonna give are you giving up smoking?

There is by the way, I don't know if it's in The UK, but here, Omnipod the company that makes Omnipod Insulin also makes it's a drug for after a cancer treatment.

I think it's for nausea, maybe.

Scott Benner (53:02)

I'm not sure.

It's like a follow-up drug after after one of the treatments.

And the kinda cool thing about it is is they used to have to, like, bring you back, but now they slap a pot on you.

It delivers the the medication, and then, like, twenty four hours later, I think you take it off.

You might get that.

Scott Benner (53:17)

You might get, like you might get a lot of stuff.

Or you know what?

Maybe you're gonna get a lot of people with diabetes who come up to you and go, like, hey.

Me too.

And maybe you'll meet your friends that way.

Scott Benner (53:27)

You know?

Claire (53:27)

I think I think that's what I need.

Like, I I saw a young girl at the gym the other day with I could see her her Omnipod and her her Libra, and I was like, oh my gosh.

Who knew?

And I've seen her a few times at the gym, but, obviously, it's the first time I've seen her with a t shirt on.

But she she jumped in the shower before I had time to to chat to her, but, you know, this this is quite a new experience for me to start noticing it.

Scott Benner (53:49)

Yeah.

Listen.

My daughter does not talk about diabetes very frequently at all.

And the number of times over the last few weeks that she's come back from school, she's in college, and, you guys call it university.

She comes back because she's she goes close enough to home that she comes back, you know, at the end of the day.

Scott Benner (54:06)

And she's like, dad she's like, dad, I keep seeing more and more people wearing Omnipods, and they're not people I know.

She's like, I just keep seeing new people wearing Omnipods, like, lot of them Yeah.

More than I can count.

I she's like, I I can't believe it.

You you know?

Scott Benner (54:21)

So you're gonna see it.

You're gonna see CGMs on folks and, you know, I listen.

You got you can make a community somehow.

Right?

Claire (54:29)

Yeah.

This time last year, I wouldn't have I would I I I I did know what a CGM was, fortunately, and and I also knew what an insulin pod was.

But I would never have battered an eyelid or looked out for it.

But it's amazing the difference a year makes now because I I will be looking out for it and, you know, making that eye contact with somebody just to

Scott Benner (54:48)

Little smile.

There's two

Claire (54:50)

girls Yeah.

Scott Benner (54:50)

Two women that came on here one time.

They met at a at a yard sale.

You know what I mean?

Like, do people do that in The UK?

Put their crap out on the front lawn and sell it?

Scott Benner (55:00)

Right.

Right?

What do you call what do you call it there?

Claire (55:03)

Well, they could they they do call it a garage sale, but we have something called a car boot sale.

So that's where all these people put all their crap in their cars.

They drive to a field.

They pay £12 for the privilege, open your car boot, and you sell all your crap out your car boot.

Scott Benner (55:18)

Nice.

So so anyway, like that, they were at a, they were just at a garage sale.

Claire (55:26)

Okay.

Scott Benner (55:26)

They noticed each other's devices, and then they started talking.

Then one of them said to the other one, hey.

Do you listen?

And she said that before she completed her sentence, the the woman went the other woman went to the Juice Box podcast.

I do.

Scott Benner (55:42)

And and she said they became friends, and now I get pictures of them out at, you know, dinner together and, like, you know, they're they're friends now.

They met at a met at a garage sale.

So it could very well happen.

You know, meet your people.

Are you in the Facebook group?

Scott Benner (55:55)

Are you using that at least for

Claire (55:56)

online gaming?

Facebook group group.

Yeah.

I've joined the Facebook group.

And like I said, I I I love reading all all the different stories, and I listen to your podcast a lot.

Claire (56:06)

I I walk.

I have to walk for an hour every day with the dog, and I listen to podcasts all the time while I walk.

So you can imagine that that, you know, that's adding up to seven, eight, nine hours a week of of podcasts just while I'm walking.

Scott Benner (56:18)

Right.

Claire (56:18)

And let alone any other times that I might stick them in my ears.

So I listen to a lot.

Scott Benner (56:23)

I appreciate it.

Well and I hope it's I mean, it sounds like it's valuable for you, but I I'm I'm glad that you're finding it to be valuable.

Really?

I said to someone the other day, there's this question, I guess, I've been asking forever, probably because I have a hard time believing that I I make a popular podcast.

And and people I'll say, well, well, how'd you hear about it?

Scott Benner (56:41)

I'm sure I'm gonna ask you in a second.

Like, how'd you hear about the podcast?

And the woman goes, come on, Scott.

I heard about it because, you know, it's everywhere.

And I I thought, do I have to stop asking that question?

Scott Benner (56:50)

Does it sound disingenuous when I go, how'd you hear about my little podcast?

But I feel that way still.

So when somebody says that, you know, it's been helpful for them or they go take it on their walks or anything like that or, you know, sometimes people pop on like, I'm sorry.

I'm nervous.

You're just very famous.

Scott Benner (57:06)

And I laugh.

I'm like, it's insane.

But, but, you know, it it's it's it's really lovely.

Anyway, how do you hear about it in England?

How does it how does it get to you?

Claire (57:14)

So I use Spotify platform, for all my music and my my podcasts and things, and I just searched diabetes.

I think yours comes up as one of the top.

It took me a while to get to grips, and and then obviously because I was quite newly diagnosed, and then I think you mentioned the bold beginnings.

And then I started going through your website to to to to find the series.

They're much it's much easier to navigate through your website with the the recent where you can do the drop down of the pro tip and, you know, the bold beginnings and the Omnipod that I listened to last week.

Claire (57:48)

So yeah.

So that was how I just searched diabetes.

There there was a couple of guys that did a UK one, but I think they've stopped now.

But they talked more about their personal experiences.

But Okay.

Claire (57:59)

Which was useful in itself, but yours also offers, you know, the whole bold beginnings, the Omnipod the Omnipod series, and everything like that.

Scott Benner (58:07)

Been We have a little bit of everything.

You know what I mean?

Like

Claire (58:10)

Really useful.

Yeah.

Scott Benner (58:11)

Good.

I'm glad.

Oh, I'm I'm actually I'm thrilled, actually.

Yep.

This is gonna sound crazy.

Scott Benner (58:16)

We're coming up on an hour, and I wanna make sure there's nothing else you wanna say.

The part that's gonna sound crazy is that while we've been recording, my oldest dog kind of fell ill out of nowhere and was breathing really weirdly, and my wife just kinda rushed him off to the vet.

Claire (58:29)

Oh, no.

Scott Benner (58:30)

So I have to You missed I'm gonna get off to check on him in a second.

Yeah.

Yeah.

But I don't wanna short change you.

So I need two things from you.

Scott Benner (58:37)

Wanna make sure that we haven't missed anything that you want to talk about.

And don't feel rushed.

Just tell me if there's anything that you that you still wanted to get to.

Claire (58:44)

No.

I think I think I've I've told my story.

Scott Benner (58:47)

You feel good?

Okay.

And now I I need a British ism for a title.

Oh.

Like, I watched these two kids.

Scott Benner (58:55)

I can't believe I'm calling them kids, but you just said the nineties were thirty years ago.

So, obviously, they're kids.

They're like these two kids in their twenties.

I think they were on TikTok, both from England.

One very southern, one northern.

Scott Benner (59:06)

They're dating now.

Mhmm.

And they were bringing up, like, household things or, like, even just, like, gosh.

One of the things was, like, I don't know, like, an alleyway.

The guy was like, what do you call an alleyway?

Scott Benner (59:18)

And she called it something completely different than he called it.

So I need a British ism for what we talked about here today.

What do got for me?

Claire (59:24)

I don't know.

I I can't think of of British ism at all.

I'm not I'm not witty at all.

This is where I need some help.

I'm not witty.

Claire (59:35)

I can't be I love it when you think up titles.

I probably haven't said anything.

Scott Benner (59:39)

No.

You said a couple of things, but I was just wondering if something popped into your head.

I might call it British, not witty.

How's that?

Claire (59:45)

Yeah.

That's me.

Yeah.

I am really British and not witty at all.

In fact, my husband and my kids, they call me the fun police because I'm so boring, you know.

Claire (59:54)

Oh.

Anyone's having a bit of fun, you know.

That that that's what they call me.

So British not witty.

They they all love that.

Scott Benner (1:00:01)

All love well, then that'll give the people who tell me that that the titles don't aren't about what the the episode's about, that they don't like.

You know what's funny?

Again, I got feedback last night.

Equal amounts of people said, I love the titles.

Who said and and equal amounts said, these titles are not helpful.

Scott Benner (1:00:20)

I never know what's in the episode.

And I I always say to at least one person in a thread whenever this comes up, go pick a couple of episodes where it strikes you that you really liked it or you found it valuable, but the title didn't help you, and you write a better title and send it to me.

Because

Claire (1:00:35)

Oh, no.

I like the titles.

Scott Benner (1:00:37)

Thank I

Claire (1:00:37)

like them.

Scott Benner (1:00:38)

Because it's not as easy as think.

Claire (1:00:40)

I read what the episodes are about as well.

So I, you know, I like to look and and pick the ones out that that I that I know that I like.

Scott Benner (1:00:47)

Thank you.

I've been putting more effort into that in the last two years.

So Yeah.

Although, I gotta be honest, AI really is what does it now.

So Yeah.

Scott Benner (1:00:54)

I've I've a massive process that the, after we're done, the m p three goes into it goes into AI.

It turns it into a into a simple transcript.

Then I drop that simple transcript into into a different AI that turns it into what you're seeing on the on the website now Wow.

Kind of breaks down

Claire (1:01:16)

It's impressive.

Scott Benner (1:01:17)

How it looks on on there.

And then when it's done and it turns it into that for the website, the last thing it does is it gives me a, basically, a 30 word or fewer description of the episode.

Because I don't know like, you and I are talking now.

If I stopped right it's very strange.

If I stopped right now and you made me write down what we talked about, I'm sort of not in that headspace right now.

Scott Benner (1:01:39)

Like, I'm very trying very hard to be in the moment with you.

And Yeah.

If you ask me a couple of hours from now, I probably could contextualize it better, but I don't think about it a couple of hours now.

I don't think about it for weeks and weeks and weeks and sometimes months until I get it back.

And then when I get it back from the editor, I don't know what the hell it's about.

Scott Benner (1:01:56)

I could have to listen to it at that point.

It's a weird process to put, like, a title on something, and nobody's famous.

Because if if you were famous, it would just be, you know, it would be your name.

And and people would be like, oh, that's great.

You know?

Scott Benner (1:02:08)

Dax Shepard's on the podcast today.

I know that guy from that Parenthood TV show, and that would be the end of it, you know, or he's isn't he married to that girl from Frozen?

That's not gonna work with your name.

Also, now I'm very self conscious because now people are like, oh, I I because somebody said last night, like, don't start telling your stories in the middle of their stories.

I'm like, am I not a part of this too?

Claire (1:02:27)

No.

I I agree.

I I think I I think that's what makes her, you know.

Scott Benner (1:02:31)

Thank you.

Claire (1:02:31)

Like, I would I think that's what makes the whole thing.

Scott Benner (1:02:34)

Yeah.

It's interesting.

My wife got off a a work call this morning, and she said, got a note from somebody on the call that they really thought the call went well.

And I said, you know, all that means is whatever you did was what they would do.

Mhmm.

Scott Benner (1:02:48)

And so they think it went well.

Because what I've really noticed and I don't there's no shade about this for anybody.

But, like, when I ask people, you know, what do you like about the podcast?

What do you wish was different?

I like to get feedback from people a lot.

Scott Benner (1:02:58)

What you learn is the things that go the way they would do it, they like.

And the things that go the way they wouldn't do it, they think should change.

And it's Yeah.

You you know?

It's like, they don't have any actual input.

Scott Benner (1:03:09)

They just are like, well, that doesn't seem exactly right to me.

Claire (1:03:13)

Absolutely.

Scott Benner (1:03:14)

One person said, I love the way you pivot with the conversation and keep going where you think it's interesting.

And another person used the exact example to say that I ruined the flow of the conversation.

And I was like

Claire (1:03:27)

So you're right.

It's it's just what you what what people like to listen to.

Scott Benner (1:03:32)

Yeah.

You either like me in the way I think about this or you don't.

And there's not a lot you can like, it's not me being wrong or you being wrong.

It's just it's just how things work.

You know?

Scott Benner (1:03:40)

So, anyway alright.

We're gonna call it British, comma, not funny.

Claire (1:03:44)

Okay.

Yeah.

Thanks for your time, Scott.

And I do hope your dog's okay.

Scott Benner (1:03:48)

No.

He's very old.

This I mean, the truth be told, I'm not sure.

But hopefully, will be.

But hold on one second for me because I do need to talk to you before we go.

Outro and Sponsors

Scott Benner (1:03:57)

Okay?

Claire (1:03:58)

Okay.

Scott Benner (1:04:06)

A huge thanks to US Med for sponsoring this episode of the Juice Box podcast.

Don't forget, usmed.com/juicebox.

This is where we get our diabetes supplies from.

You can as well.

Use the link or call (888) 721-1514.

Scott Benner (1:04:23)

Use the link or call the number, get your free benefits checked so that you can start getting your diabetes supplies the way we do from US Med.

The podcast episode that you just enjoyed was sponsored by Eversense CGM.

They make the Eversense three sixty five.

That thing lasts a whole year.

One insertion?

Scott Benner (1:04:44)

Every year?

Come on.

You probably feel like I'm messing with you, but I'm not.

Eversensecgm.com/juicebox.

Today's episode of the Juice Box podcast was sponsored by the new Tandem Mobi system and Control IQ Plus technology.

Scott Benner (1:05:00)

Learn more and get started today at tandemdiabetes.com/juicebox.

Check it out.

Thank you so much for listening.

I'll be back very soon with another episode of the juice box podcast.

If you're not already subscribed or following the podcast in your favorite audio app, like Spotify or Apple podcasts, please do that now.

Scott Benner (1:05:21)

Seriously, just to hit follow or subscribe will really help the show.

If you go a little further in Apple Podcasts and set it up so that it downloads all new episodes, I'll be your best friend.

And if you leave a five star review, oh, I'll probably send you a Christmas card.

Would you like a Christmas card?

If you've ever heard a diabetes term and thought, okay, but what does that actually mean?

Scott Benner (1:05:50)

You need the defining diabetes series from the Juice Box podcast.

Defining diabetes takes all those phrases and terms that you don't understand and makes them clear.

Quick and easy episodes.

Find out what bolus means, basal, insulin sensitivity, and all of the rest.

There has to be over 60 episodes of Defining Diabetes.

Scott Benner (1:06:09)

Check it out now in your audio player or go to juiceboxpodcast.com and go up into the menu.

The Juice Box podcast is edited by Wrong Way Recording.

Wrongwayrecording.com.

If you'd like your podcast to sound as good as mine, check out Rob at wrongwayrecording.com.

READ FULL TRANSCRIPT

```

#1869 F Around and Find Out

Nurse practitioner Christine lived with Type 1 diabetes for over twenty years before realizing her early medical advice was flawed. She discusses unlearning bad habits, pregnancy, and lowering her A1C.

Proudly supported by

```html

Key Takeaways

• Jordan was diagnosed with Type 1 diabetes at 25 after ignoring months of severe symptoms, including a 40-pound weight loss, extreme fatigue, and excessive urination.
• A trip to the dentist for oral lesions (lichen planus) was an early warning sign of a potential autoimmune issue before his official diagnosis.
• Despite his age, Jordan's primary care doctor quickly suspected Type 1 diabetes, promptly ordering GAD-65, c-peptide, and zinc transporter antibody tests.
• Jordan is currently experiencing a slow-onset "honeymoon phase," requiring only a small basal insulin dose and frequently experiencing lows due to intense exercise and rebounding beta cell function.
• Basic health maintenance, such as taking vitamins and digestive enzymes, can be crucial for overall well-being and managing the systemic inflammation often associated with chronic conditions.

Resources Mentioned

• Touched by Type 1
• Tandem Mobi System
• Eversense 365 CGM
• Interactive Defining Diabetes
• Wrong Way Recording

FULL EPISODE TRANSCRIPT

Introduction and Sponsors

Scott Benner (0:00)

Welcome back, friends, to another episode of the Juice Box podcast.

Jordon (0:14)

Hello.

My name is Jordan.

I am from Maryland, and I have type one diabetes.

I was diagnosed close to a year ago.

I am about to turn 26 years old.

Scott Benner (0:29)

If you're looking for community around type one diabetes, check out the Juice Box Podcast private Facebook group.

Juice Box Podcast, type one diabetes.

But everybody is welcome.

Type one, type two, gestational, loved ones, it doesn't matter to me.

If you're impacted by diabetes and you're looking for support, comfort, or community, check out Juice Box podcast, type one diabetes on Facebook.

Scott Benner (0:54)

If you're living with type one diabetes, the After Dark collection from the Juice Box podcast is the only place to hear the stories that no one else talks about.

From drugs to depression, self harm, trauma, addiction, and so much more.

Go to juiceboxpodcast.com, up in the menu, and click on after dark.

There, you'll see a full list of all of the after dark episodes.

Nothing you hear on the juice box podcast should be considered advice, medical or otherwise.

Scott Benner (1:24)

Always consult a physician before making any changes to your health care plan.

This episode of the juice box podcast is brought to you by my favorite diabetes organization, touched by type one.

Please take a moment to learn more about them at touchedbytype1.org on Facebook and Instagram.

Touchedbytype1.org.

Check out their many programs, their annual conference, awareness campaign, their d box program, dancing for diabetes.

Scott Benner (1:53)

They have a dance program for local kids, a golf night, and so much more.

Touchedbytype1.org.

You're looking to help or you wanna see people helping people with type one, you want touched by type1.org.

Today's episode is also sponsored by the Tandem Mobi system with Control IQ plus technology.

If you are looking for the only system with auto bolus, multiple wear options, and full control from your personal iPhone, you're looking for Tandem's newest pump and algorithm.

Scott Benner (2:25)

Use my link to support the podcast, tandemdiabetes.com/juicebox.

Check it out.

The podcast is also sponsored today by the Eversense three sixty five, the one year wear CGM.

That's one insertion a year.

That's it.

Scott Benner (2:42)

And here's a little bonus for you.

How about there's no limit on how many friends and family you can share your data with with the Eversense Now app?

No limits.

Eversense.

A Slow and Ignored Onset

Jordon (2:51)

Hello.

My name is Jordan.

I am from Maryland, and I have type one diabetes.

I was diagnosed close to a year ago.

I am about to turn 26 years old.

Scott Benner (3:05)

Oh, well, about to be happy birthday.

Good for you.

Jordon (3:08)

Thank you.

Thank you.

Scott Benner (3:09)

Maryland, the state that connects easily to Pennsylvania, no one realizes it.

Jordon (3:13)

That's right.

Yeah.

Mhmm.

Sometimes it, depending on how far into Pennsylvania, it could be, like, an hour drive or a four hour drive to get there, though.

Scott Benner (3:23)

Yeah.

My son went to college in Central PA.

Jordon (3:26)

And Oh, really?

Scott Benner (3:26)

Yeah.

And he had he's a friend that lives in Maryland, his parents would show up at baseball games, and I'd always be like, how long did it take you to get here?

And they were like, oh, forty five minutes?

And I was like, wait.

What?

Scott Benner (3:36)

Long.

Yeah.

That's okay.

Jordon (3:39)

That's kinda bizarre.

Scott Benner (3:40)

I kinda don't understand the map, Jordan.

That's all.

Jordon (3:43)

But, yeah, me neither.

Scott Benner (3:44)

What precipitated this diabetes thing?

Was anything going on?

Was your health weird, or did it come on all at once?

What was the process?

Jordon (3:51)

Truthfully, Scott, do not know.

I used to think that I was super in touch with my health.

Truth be told, I just kinda got sick December 2024, and then it was like I I never knew if I was gonna wake up in the morning and feel perfectly fine or feel like death.

Mhmm.

And it took me a good six months before I went in to the doctor, and I I just went in for a physical.

Jordon (4:20)

I wasn't even prepared to to be like, hey.

I've been feeling ill for a little while.

I just thought, you know, we'll see how things go.

Scott Benner (4:29)

Were you, like, 24, 25 years old at that point?

Jordon (4:33)

Yeah.

So I just I had just turned 25 when I got diagnosed.

Scott Benner (4:37)

Any health issues throughout your life prior to that?

Jordon (4:40)

Asthma, allergies.

That's pretty much it.

Just the asthma and allergy.

Scott Benner (4:44)

Nothing that makes you predisposed to just accept not feeling well randomly for no reason?

Jordon (4:50)

Correct.

Yeah.

Yeah.

Nothing like that.

Scott Benner (4:51)

Why'd you do that then?

Think I I know we've been talking for two minutes, but, like, think on that for a second.

Like, how come you felt so horrible periodically and were just like, I

Jordon (5:02)

have never been, like, perfect in terms of of, you know, eating well, exercise you know, like, I'll I'll eat a crappy meal with my friends kinda frequently, you know, interspersed with my healthy meals and stuff like that.

So I kinda figured, like, hey.

Maybe I'm I'm just so inconsistent with my health that, you know, I'm just some days, I wake up feeling crappy, and sometimes I feel good.

Scott Benner (5:30)

This is what it feels like when your body's processing a half a pizza and a bag of Doritos.

Jordon (5:34)

Exactly.

Scott Benner (5:35)

I see.

And are you living at home or alone by then?

Jordon (5:39)

I, live at home.

Scott Benner (5:41)

Okay.

So so so you there are people around.

Like, you could turn to your mom and say, I don't feel good, but you just kinda don't do that.

Jordon (5:50)

Yeah.

Unless it was, like, really taking its toll on me unless, you know, I was staying in bed for five hours longer than I usually did, then she you know, it would be obvious to everyone else, but I I just didn't really mention it.

Scott Benner (6:06)

And that was happening sometimes?

Get up in the morning, you're like, I can't I can't function?

Jordon (6:11)

That happened more frequently, towards the diagnosis.

So, just for reference, I usually wake up around seven in the morning.

There were a couple mornings that I woke up at eleven or noon.

It just it didn't make sense to me, and that was worrisome.

I was like, what the hell is you know?

Scott Benner (6:33)

Oh, wow.

Like, you'd open your eyes and think, how is it possibly 11AM something's wrong?

Jordon (6:38)

Yeah.

There was one morning I think I woke up at, like, nine, and I was I couldn't move my body.

And so I was like, maybe I just need an extra thirty minutes to sleep, and then I woke up at one in the afternoon.

Scott Benner (6:52)

Because you know how frequently people wake up and can't move.

Jordon (6:57)

Honestly, though, that had never happened to me.

Scott Benner (7:00)

Yeah.

That's why I should have panicked you.

Jordan, what's Why is everyone not as worried about themselves as I am?

I wake up and I have that feeling.

I immediately I'm screaming.

Scott Benner (7:12)

So what?

Everybody here shot.

Jordon (7:13)

You know?

Scott Benner (7:13)

I need help.

Yeah.

Yeah.

Well I Okay.

How long does this go on for, Jordan, before you, like, you speak up or do something?

Jordon (7:23)

I would say probably, like, two months.

Like, from my birthday in springtime to I was diagnosed in June.

So, yeah, a couple months.

Scott Benner (7:36)

Wow.

Jordon (7:37)

But I think from the first sorry.

I don't I don't wanna be gross or too specific here.

But

Scott Benner (7:42)

No.

Definitely be gross and too specific.

Jordon (7:44)

Go ahead.

In December so I was diagnosed in June 25.

In December 24, I went over to a friend's house, and we were just hanging out for most of the day.

And it was Christmas time, so they had those, like, Godiva snowmen or whatever it is.

Mhmm.

Jordon (8:07)

And I was, like, I was housing on the sky.

Like, I ate enough to kill a baby elephant and went home later that night, and I threw up for probably, like, five hours.

I was going to the bathroom, like, every ten minutes maybe.

Scott Benner (8:29)

Jordan, what what they call, coming out of both ends?

Jordon (8:32)

No.

No?

No.

Nothing was

Scott Benner (8:35)

were peeing and throwing up?

Jordon (8:37)

I was just throwing up.

Scott Benner (8:39)

Oh, you say oh, going to the bathroom.

I thought you meant when you say going to bathroom.

Jordon (8:42)

I'm sorry.

Scott Benner (8:43)

No.

Don't be sorry.

That's me.

I thought you meant

Jordon (8:45)

I made it to the bathroom.

That's why I added it in the story.

Scott Benner (8:48)

The vomit.

Okay.

Jordon (8:50)

Yeah.

People give you a,

Scott Benner (8:51)

like, side eye because those things are kind of expensive, those little chocolates where they're like, what's up with him?

You you know what I mean?

Jordon (8:57)

Yes.

But I have always I've always been the kind of guy that, like, if I'm hungry, I'm gonna eat all the food and I don't really care.

Scott Benner (9:05)

Anybody thinks about it?

Yeah.

Yeah.

I mean, DKA.

Right?

Scott Benner (9:10)

No.

No?

Okay.

Go on.

What happened?

Jordon (9:13)

This was this was six months before I went to the doctor.

Scott Benner (9:17)

Oh, okay.

Keep going.

Jordon (9:18)

So I was like, oh god.

Dying.

Called out of work for the next two days, but, honestly, I was fine.

That little bout finished up.

I woke up the next morning fine.

Jordon (9:30)

It was so weird.

I think I went on being okay for another few months before that, like, terrible fatigue set in.

Scott Benner (9:39)

Yeah.

Jordon (9:39)

And then I was like, okay.

Let's let's schedule

Scott Benner (9:43)

I go to doctor.

Yeah.

Hey.

You call out of work.

Do you say, hey.

Scott Benner (9:47)

I ate a bunch of, Santa Claus chocolates and threw up.

I can't come in, or you just make something

Jordon (9:52)

Scott, I'm a master at making up excuses for getting out of work.

I don't remember what I said, but they were like, oh my god, you know, please take care of yourself.

Yeah.

Scott Benner (10:03)

I I don't know many people are gonna have contacts for this, but the comedian, Arty Lang, used to be on the Howard Stern Show, and, there'd be there's calls of him, like, calling and saying he couldn't come in to do the show that day, he was like, hey.

I'm I'm not feeling great.

He was on heroin.

He was on heroin, by the way.

It was like he would but he would do he would do a little cough.

Scott Benner (10:24)

Yeah.

Jordon (10:26)

Who knows what they thought of me, but I, again, didn't care.

Scott Benner (10:30)

Don't make me sit back, Jordan, and think about the arty days on the Stern Show.

They were perfect.

Jordon (10:34)

Oh my god.

Scott Benner (10:35)

But you have no idea what I'm talking about.

It's okay.

Jordon (10:37)

I don't.

Scott Benner (10:38)

You should Google Arty Lang's nose at some point in your life.

Jordon (10:41)

For it now.

Yeah.

Scott Benner (10:42)

Yeah.

Just to see what just to see what the cocaine could do to you.

Jordon (10:45)

Right?

Yeah.

Exactly.

Scott Benner (10:46)

Jordan, are your parents not involved at all?

How are you just what if you just set up a physical?

Jordon (10:51)

I've been like this since I was younger.

I always just kinda took care of business before it could get to my parents.

And then when they found out things were going okay, they were like, oh, good job, Jordan.

Scott Benner (11:04)

You know?

Lot of kids?

Lot of brothers and sisters?

Jordon (11:07)

Nope.

Just me and one older brother.

Scott Benner (11:09)

What are you protecting them from?

Jordon (11:11)

Oh, god.

I don't know.

Scott Benner (11:14)

Come on.

Does it about seem like she can't take it?

She get upset easily?

What it's it's simple psychology.

Figure it out, Jordan.

Scott Benner (11:20)

Why do you keep it from them?

Jordon (11:22)

Yes.

What you said is is pretty spot on.

Scott Benner (11:25)

Okay.

Alright.

Jordon (11:26)

I just to to kind of save them from stressing out because they're both emotional people, and I'm an emotional person.

So I think it also stressed me out when my parents got concerned.

Scott Benner (11:39)

Makes sense.

Jordon (11:39)

So I was just like, let me take care of this.

And especially at 25, I was like, you know, I can I can schedule my own doctor's appointment?

Scott Benner (11:50)

Well, you feel like an adult, first of all.

And secondly, you're not, by the way, but you feel like an adult.

And, by the way, I think I had a kid when I was 27.

I wasn't an adult then either.

But also That's crazy.

Scott Benner (12:00)

Yeah.

Also, you want to yeah.

I know younger people now are like, when did you have children?

That's not happening.

Jordon (12:05)

Hard to imagine.

Scott Benner (12:06)

Yeah.

Yeah.

But you you, you know, you're like, look.

I'm old enough to take care of this.

Also, I'm a healthy person.

Scott Benner (12:12)

There's nothing really wrong.

You just keep thinking it's gonna go away.

Right?

Right.

Correct.

Scott Benner (12:16)

Yeah.

I gotcha.

Okay.

So you head off to the doctor.

Do they pick it up at the physical?

The Dentist and the Physical

Jordon (12:22)

Well, you know, the in the the office, my visit with the doctor was fine.

Blood pressure was good, heart, lung, blah blah blah, all that crap.

But I oh, I forgot to mention this.

I am gonna backtrack.

Sorry.

Jordon (12:35)

But it it

Scott Benner (12:35)

Go ahead.

Don't be sorry.

Jordon (12:37)

Fills in the story nicely.

I had gone to the dentist a couple months earlier, and she found she used the word lesions, which creeped me out.

Some lesions in my mouth and said this looks like oral lichen planus.

I don't know if you've ever heard of that.

Scott Benner (12:55)

Okay.

Jordon (12:56)

But she said it can often be triggered by an autoimmune issue.

And I was like, I I don't have any autoimmune issues.

And the hygienist was like, have you been to the doctor recently?

Got your labs look good?

And I was like, well, yeah.

Jordon (13:11)

They looked fine three years ago.

Scott Benner (13:13)

Three years ago?

They

Jordon (13:15)

were perfect.

That was the last time I had been to the doctor.

So I was like, you know, I was just I was panicking a little bit and just trying to still cover it up at that point.

Scott Benner (13:26)

If I can I just say for dentists who are listening, the reason we don't trust you, and we should, dentists are a good first line of defense for bigger issues?

Yes.

But we don't know if you're trying to upsell us some peroxide trays or if there's really a problem.

You understand?

Jordon (13:39)

Seriously.

Yeah.

Scott Benner (13:40)

You seem like a Charlton once in a while, dentist.

Try not to don't be so thirsty with the money all the time, and maybe we'd listen to you when you said there was

Jordon (13:49)

a problem.

I don't trust you.

Scott Benner (13:50)

Mhmm.

I know.

I know.

Go ahead.

Jordon (13:52)

So yeah.

But because at first, was like, oh, this could be precancerous and blah blah blah blah blah, and then she came up with the autoimmune thing, which also didn't make sense to me because I'm like, why would I have mouth cancer or an autoimmune issue?

Scott Benner (14:08)

Do you have any context for what autoimmune means when she's saying that?

Jordon (14:12)

No.

Scott Benner (14:13)

Okay.

Jordon (14:14)

Not none whatsoever.

And, so I figured this was in about April, I think.

So two months before my diagnosis, and that's when I set up my physical because I was like, okay.

It's, you know, probably best to see.

So I mentioned into this.

Jordon (14:31)

Yeah.

Why not?

What the hell?

Scott Benner (14:33)

Just in case my lesion is mouth cancer, why don't I maybe take a looky loo and see what happens?

Right.

Right.

What's your expectation going to that doctor?

Are you thinking, like, there's nothing wrong, or do you are you worried something's really up?

Scott Benner (14:48)

Let's talk about the Tandem Mobi insulin pump from today's sponsor, Tandem Diabetes Care.

Their newest algorithm, Control IQ Plus technology and the new Tandem Mobi pump offer you unique opportunities to have better control.

It's the only system with auto bolus that helps with missed meals and preventing hyperglycemia, the only system with a dedicated sleep setting, and the only system with off or on body wear options.

Tandem Mobi gives you more discretion, freedom, and options for how to manage your diabetes.

This is their best algorithm ever, and they'd like you to check it out at tandemdiabetes.com/juicebox.

Scott Benner (15:28)

When you get to my link, you're going to see integrations with Dexcom sensors and a ton of other information that's gonna help you learn about Tandem's tiny pump that's big on control.

Tandemdiabetes.com/juicebox.

The Tandem Mobi system is available for people ages two and up who want an automated delivery system to help them sleep better, wake up in range, and address high blood sugars with auto bolus.

This episode of the Juice Box podcast is sponsored by the Eversense three sixty five.

Get three hundred and sixty five days of comfortable wear without having to change a sensor.

Scott Benner (16:06)

When you think of a continuous glucose monitor, you think of a CGM that lasts ten or fourteen days.

But the Eversense three sixty five, it lives up to its name, lasting three hundred and sixty five days.

That's one year without having to change your CGM.

With the Eversense three sixty five, you can count on comfort and consistency three hundred and sixty five days a year because the Eversense silicone based adhesive is designed for your skin to be gentle and to allow you to take the transmitter on and off to enjoy your shower, a trip to the pool, or an activity where you don't want your CGM on your body.

If you're looking for comfort, accuracy, and a one year wear, you are looking for Eversense three sixty five.

Scott Benner (16:53)

Go to eversensecgm.com/juicebox to learn more.

Jordon (16:59)

Oh, I'm absolutely thinking nothing's wrong.

Even though I'm sleeping until noon, have lesions in my mouth, and yeah.

Yes.

And by the way, I've lost 40 pounds.

And yeah.

Scott Benner (17:16)

I think this podcast is just a look into all of your stupidity and anxiety.

Not you, Jordan.

Everybody everybody listening.

I love I love these first of all, I'm glad you're alive.

But, like Thank you.

Scott Benner (17:27)

You know, like, listening back in con like, you know, with some context in hindsight.

Mhmm.

Really, like, I everyone's listening going like, oh my god.

What a dumbass.

Why didn't he go to the doctor?

Scott Benner (17:38)

But you all do the same thing.

So yeah.

I'm the only one who screams the minute something's wrong.

Jordon (17:44)

Yeah.

Yeah.

And so I well, I had lost all that weight, but I also began working as a personal trainer shortly before that point, and I started rock climbing, like, pretty intensely.

So I was doing all this crap, and I figured, hey.

Maybe maybe all of this is because I'm I'm overtraining a little bit anyway.

Scott Benner (18:08)

Can I interject one more time?

I'm sorry.

I know I'm choppy up here, but but, like, I want everyone to listen to what just got said there.

Jordan, 25 years old, has turned into a personal trainer.

You're out there giving him your money.

Scott Benner (18:21)

He can't figure out what's

Jordon (18:22)

how to take care of myself.

Scott Benner (18:23)

He can't take care of himself, and you're paying him to help you take care.

Just open up chatty p t and ask it for a workout plan.

Okay?

I'm sorry Jordan's out of business now, but, like

Jordon (18:33)

Do it.

Scott Benner (18:33)

Stop thinking everybody knows something.

You shouldn't trust me.

I don't know what you're doing right now.

Like No.

Go ahead.

Scott Benner (18:40)

Go ahead.

Sorry.

Jordon (18:43)

Oh, but yeah.

That was that was pretty shameful moment for me.

So I'm in the doctor.

I got the blood drawn, and I walked out.

It's springtime.

Diagnosis and the A1C Shock

Jordon (18:54)

It's beautiful outside, Scott.

And I left the doctor.

I was like, I am so healthy.

You know?

I'm feeling great.

Jordon (19:01)

I just, just went to the doctor.

I'm a big boy now doing that by myself.

And, so the lab results start coming in later that afternoon.

And it's like, oh, that looks good.

Electrolytes were a little bit off, but nothing crazy.

Jordon (19:21)

And then the, whatever it's called, metabolic panel comes in, and it's like, good.

Good.

Good.

Good.

And then glucose is three fifty seven.

Jordon (19:30)

And I was like, oh, well, that's, you know, that's a bit high.

Scott Benner (19:35)

Seems wrong.

Could be feeding those lesions, maybe, all that sugar.

Jordon (19:39)

I was like, maybe.

I I came up with everything, every excuse, and I was in the car with two friends at the time.

And one of them is is very smart, still love her, but at this point in time, I was I was ready to jump back and strangle her.

But she was like, oh, you know, like, if you're if you eat late at night, you know, maybe your food wasn't didn't have time to digest, and so you have and I was like, yeah.

But it's 03:57.

Jordon (20:09)

That's pretty

Scott Benner (20:10)

Shut up, Patty.

You don't know what you're talking about.

Jordon (20:12)

Yeah.

I was like I don't know.

I I was, like, shivering, I swear.

And my friends were just kinda like, what's wrong with you?

And then I went home and told my mom, and she just looked at me, like because my mom is she spent a lot of time working in the center for biologics, and, you know, she's she's familiar with, like, islet cell transfers.

Jordon (20:40)

So she knew all about diabetes and all that stuff before I did, I guess.

She her face was not very comforting, just to say the least.

Scott Benner (20:50)

Yeah.

Jordon (20:51)

And so I was like, okay.

It's fine.

You know, we'll wait for more.

And then the a one c came in, and I almost passed out because it was fourteen point five.

Scott Benner (21:03)

Wow.

Jordon (21:04)

And I was just kinda like, okay.

So I guess

Scott Benner (21:09)

I have diabetes.

Jordon (21:10)

That's that's something Yeah.

Scott Benner (21:12)

Connected there?

Do you say I have diabetes when you see the a one c?

Jordon (21:16)

I think I knew, but verbally, I was not acknowledging it.

I knew, but I was still trying to, I think it goes back to, like, not wanting to, you know, have everyone be concerned and stuff.

Scott Benner (21:31)

You all think backwards.

Can I just say can if you put me in this exact situation, here's what happens to me?

I have something I I get a little bit of, what they call information.

Then and then if it's enough to actually be concerned about, which is where you are, then I deep I deep dive it, and I make sure I understand all the possibilities, whether they're uncomfortable or not.

And then I wait to get the rest of the information so that when the rest of the information comes, I can apply what I've learned to the info the new information I have and come to a reasonable conclusion.

Scott Benner (22:00)

Then whatever that conclusion is, we move forward.

Jordon (22:03)

Well, listen, Scott.

Scott Benner (22:04)

Yeah.

Jordon (22:05)

Congrats on being level headed, but some of us, when we do a deep dive, get even more crazy and anxious and paranoid.

Scott Benner (22:14)

That doesn't happen to me.

I just got because I think I've been through so much.

I'm expect something terrible to happen.

I'm okay.

I just wanna I just wanna know, like, what am I supposed to do when that occurs.

Scott Benner (22:26)

Yeah.

And then if it doesn't occur, it's like winning the lottery.

Jordon (22:30)

Yeah.

Scott Benner (22:30)

Yeah.

Like, everybody's like, oh, I I found a lump.

I didn't wanna get I didn't wanna get it looked at.

Get it looked at.

It's probably nothing, and you're gonna feel like you won.

Scott Benner (22:37)

Like and if it and if it is something, maybe it saves your life.

Yeah.

Little bit of bad news

Jordon (22:43)

happening here.

Scott Benner (22:43)

Little bit of bad news, lot of good news afterwards.

And Yeah.

Sure some people die.

But, like, if that's me, I also I I also won't care because I'll be dead.

Do you understand how it's so simple.

Scott Benner (22:55)

I can't explain the world to you people every day.

Okay?

This is very, simple.

That's all.

You're either gonna live or you're

Jordon (23:03)

gonna gonna say something like this to me when I talk.

Scott Benner (23:06)

Oh, Jordan, you're a listener.

That's nice.

I appreciate your support.

Jordon (23:09)

I am yeah.

Yeah.

Scott Benner (23:10)

Okay.

Yeah.

It's very simple.

You're either gonna live or you're gonna die.

If you're gonna live, do it as well as you can.

Scott Benner (23:15)

And if you're gonna die, it doesn't matter.

Do you understand?

You'll be dead.

Jordon (23:20)

Yeah.

Scott Benner (23:20)

You know who's not worried about how they feel right now?

Benjamin Franklin.

Jordon (23:24)

Dead.

Dead.

Scott Benner (23:25)

Yeah.

Yeah.

He couldn't possibly care less nor would he be able to if he could.

Do you understand?

He's gone.

Jordon (23:31)

Very true.

Scott Benner (23:32)

I can't anymore, Jordan.

That's it.

This is the last it's the last episode.

I can't do it anymore.

Okay?

Scott Benner (23:36)

It's all so simple.

The one that ended the podcast.

No, Jordan.

It's everybody together.

It just it came together cumulatively, and this is where it exploded.

Scott Benner (23:46)

I just can't alright.

Alright.

Fine.

I'll stop.

Let me relax.

Scott Benner (23:49)

Hold on a second.

Let's put an ad here.

Jordon (23:52)

Let's do it.

Yeah.

Okay.

What do you

Scott Benner (23:54)

think it'll be?

US med?

Omnipod?

Who knows?

Jordon (23:56)

We'll find out.

Scott Benner (23:57)

We'll find out in a second.

Okay.

Go ahead.

I'm sorry.

Continue on.

Scott Benner (24:00)

I'm gonna stop.

But I get no.

No.

I felt like I pulled a soapbox out.

I didn't mean to do that.

Scott Benner (24:04)

Go ahead.

Jordon (24:04)

Not at all.

So got yeah.

A one c came back, and it was ridiculous.

And so I just had to wait because the doctor was out for the day.

It was, you know, after 05:00 at that point, she'd gone home.

Jordon (24:17)

Mhmm.

So I I wasn't expecting it, but I I got a call at, like, 09:00 in the morning, and she was like, are you okay?

Like

Scott Benner (24:27)

The are you okay call?

Jordon (24:28)

Yeah.

Are you feeling okay?

Because it looks like you have diabetes.

And she asked she then asked me all of the, like, have you been eating a lot more sugar in the last three months?

Have you been well and I was like, yes.

Jordon (24:44)

I don't know.

Because at that point, I'm like Yeah.

My god.

I gave myself diabetes because I have

Scott Benner (24:49)

so that Santa Claus'?

Jordon (24:51)

Exactly.

Scott Benner (24:52)

Yeah.

Jordon (24:53)

So I said yes even though it wasn't really true.

I mean, I I eat really well.

Mhmm.

I asked her, like, what type is this?

And she was like, I I have no clue.

Jordon (25:05)

We're gonna do some more testing.

And see this, I've listened to, you know, a million episodes of the podcast and have heard about how people's doctors have treated them, you know, especially, like, young adults being diagnosed and initially misdiagnosed.

Scott Benner (25:24)

Yeah.

Jordon (25:24)

But that man, this woman, she put in the GAD, 65 Right away.

Immediately.

Scott Benner (25:30)

Good for you.

Jordon (25:31)

So I I went in that after that phone call the next morning, got another blood draw in my, I think I was at, like, two seventy five fasting.

Mhmm.

And I had probably been not eating, you know, ever since seeing those numbers, and so two seventy five was high.

Scott Benner (25:50)

Two questions.

How did you know to ask what type it was?

Jordon (25:53)

Because something just didn't seem right.

I mean, I, you know, I went to to school for nutrition science.

You know?

I took anatomy, physio blah blah blah.

And I was just kinda like, I'm 25 years old.

Jordon (26:08)

I am at a normal weight.

I eat pretty well, and I'm I'm ridiculously active.

So, like It would be

Scott Benner (26:15)

odd if I had type two diabetes.

Yeah.

Okay.

Jordon (26:17)

Yeah.

Even even though I'm not perfect with my diet.

Scott Benner (26:21)

Mhmm.

Okay.

Jordon (26:22)

I have two friends with type one.

Scott Benner (26:26)

Oh, okay.

Jordon (26:27)

So I was Well, that's helpful.

I I I'm I'm aware of type one even though I I I didn't know too much

Scott Benner (26:32)

about it.

You all don't live on the same street next to a toxic waste dump or something like that, do you?

Jordon (26:37)

Hey.

We live pretty damn close, so there might be something there.

Scott Benner (26:40)

No kidding.

Okay.

Keep going.

Jordon (26:42)

Yeah.

So she she told me we would do some testing, and the GAD it came back.

I think the reference value was, like, normal is less than five international units or something, and mine was, like, 15.

So I was like, oh, so that's positive.

They said it's kind of, like, on the low end of positive, but still.

Jordon (27:04)

You know?

Scott Benner (27:05)

Mhmm.

Jordon (27:06)

And then they tested c peptide, which was also, like, just under normal, the low end of normal, and that was after eating.

And then they did the zinc transporter antibody.

Yep.

And that one was also positive, but on the low end.

So I that kind of all made sense with the fact that I was not in DKA yet.

Scott Benner (27:29)

Yeah.

The slower the slower diagnosis that was happening to you.

Jordon (27:33)

Yes.

Yeah.

Let me just say again, I I wanna give a lot of credit too, but this was my primary care.

Scott Benner (27:40)

Wow.

Wow.

Jordon (27:41)

Yeah.

Young lady, which I think had a lot to do with it, she just put all that in right away, got me on insulin right away.

Scott Benner (27:49)

You think because she was young, she's motivated to do a good job.

She's still interested in in her work, that kind of thing.

Is that what you're saying?

Jordon (27:55)

Correct.

Yeah.

Because she left, actually, I was very upset because I got an email saying that she was no longer with Kaiser.

And I don't know if it doesn't matter if I say that out loud.

But No.

Jordon (28:08)

Anyway so I had to choose a new one, and I chose an older man who we talked about the fact that it was type one.

Yes.

Antibody positive.

But I looked back at the clinical notes after my appointment, and I was so pissed off because he had written down that I needed here I am sitting in his office, a hundred and thirty pounds.

I'm, like, five nine.

Jordon (28:32)

And he writes down that I need exercise counseling and diet counseling.

And, like, he's he's talking to me as if, oh, yeah.

I bet you're doing all that exercise to try to, you know, like, lower your blood sugar and keep your weight in check.

And I was like, not really.

I I lost 40 pounds without trying.

Scott Benner (28:55)

Yeah.

Yeah.

One thirty on a five nine frame.

You must have looked like a 12 year old girl.

Jordon (29:00)

Oh my god.

Yeah.

Yeah.

Yeah.

So this was one one of the things that really made me upset, concerned before I made the doctor's appointment was I went to a baseball game with my friends, and we took a group picture.

Jordon (29:15)

And I was on, like, the side, so I had to, like, lean in.

And my neck, ugh, it looked so gross.

It was, like, so skinny and long, and my face, my cheekbones were sunken in.

Scott Benner (29:29)

I'm five nine, Jordan.

And the last time I weighed myself, I was one seventy six, and I look thin.

Like like Yeah.

Jordon (29:38)

Yeah.

You know what I pictures of you since you've, since you've lost weight.

And I'm like, wow.

That guy's that guy's thin.

Scott Benner (29:43)

Photograph well.

But, like, I'm telling you in person, like, I I look like, I look thinner.

Like and I can't imagine.

If you took 40 more pounds off of me, I'm trying to imagine what that would be like.

Jordon (29:54)

Yeah.

I go to this brewery with my friends.

We play, like, trivia and stuff there, and they have these terribly uncomfortable wooden chairs.

Scott Benner (30:04)

Oh, yeah.

Jordon (30:04)

And I started to have to get up, like, every few minutes to, quote, go to the bathroom.

But, well, I was doing that because I was peeing all the time.

Scott Benner (30:15)

But your butt hurt.

Jordon (30:16)

Yeah.

My Yeah.

Hurt.

And I could see my hip bones.

I could see my my shoulder points were just yeah.

Scott Benner (30:25)

Yeah.

Yeah.

I have trouble on a plane.

Some of the airline seats are really uncomfortable now because I my ass is gone.

Like, it just yeah.

Scott Benner (30:33)

I'm not even kidding.

Jordon (30:34)

Cushion.

Scott Benner (30:34)

Yeah.

They're they're they're yeah.

No kidding.

Yeah.

Like so it it's no joke.

Scott Benner (30:39)

Your bones are pushing on your skin.

Yep.

Yep.

Oh, Jesus.

Jordon (30:43)

And

Scott Benner (30:44)

Look at you.

Jordon (30:44)

And that yeah.

I know.

But, you know, the funny thing that I just I gotta be honest.

I gotta mention it.

I got out of the shower one day and was like, damn, dude.

Jordon (30:56)

Like, you have been doing a great job, you know, killing it in the gym.

Scott Benner (31:01)

Yeah.

I am ripped.

Look at me.

Jordon (31:04)

So at the on the one hand, you know, cancerous lesions in my mouth and vom all that stuff.

Scott Benner (31:10)

But look how thin I am.

Yeah.

Jesus.

Yeah.

Usually the way, a number of people have said that to me over the years.

Scott Benner (31:17)

It's usually women.

I just want you to know.

But, like, it's, today, it's you.

I like that.

I'm like, you're like, oh, look at me.

Jordon (31:22)

Well, I I've always been healthy, but always had a my it's funny.

My grandfather always said I had baby fat, and that always pissed me off.

Yeah.

So I was like, damn.

I'm finally, it took me until 25, but I lost my baby fat.

Family Health History and Autoimmune Links

Scott Benner (31:37)

Is he is he still alive?

Did you go show it off to him?

Jordon (31:40)

He is still alive.

And, you know, I this, kinda off topic off topic, but he was one person I thought that I would really be able to talk to about the diabetes, but he didn't even understand.

Scott Benner (31:53)

Why'd you think you'd be able to talk to him about it?

Jordon (31:55)

I don't know considering he was making, you know, asinine comments about my weight and body composition when I was a child.

But

Scott Benner (32:05)

Great generation.

The greatest generation.

You know what I mean?

Jordon (32:08)

Yeah.

Seriously.

He's a a guy who fancies himself to be wise.

I can I'm trying to put it as nicely as I

Scott Benner (32:16)

can.

So when you were younger, you were like, I think this guy knows something.

He tells me he knows something.

Then you went to him, you're like, you don't know anything about this.

Jordon (32:23)

Correct.

Scott Benner (32:23)

Yeah.

Yeah.

He's what they call, foolish.

Jordon (32:26)

Yep.

Yeah.

Some might say.

Yeah.

Scott Benner (32:30)

That's awesome.

Your dad's mom or your mom's mom?

Jordon (32:33)

My dad's mom.

Scott Benner (32:34)

That's okay.

Okay.

Is your dad the same way, is your dad like

Jordon (32:37)

Sorry.

My dad's dad.

Scott Benner (32:38)

Your dad's dad?

Sorry.

Yeah.

And that was me.

I led you wrong there.

Scott Benner (32:41)

Is your father similar, or did he go different path from your grandfather?

Jordon (32:45)

Actually, he took a a worse path.

So my dad my dad has early onset Alzheimer's.

Oh, god.

Sorry.

Been, yeah.

Jordon (32:54)

Thank you.

That's he was diagnosed about three years ago, but the whole process has been probably about a decade long.

Scott Benner (33:01)

No kidding.

How old is he now?

Jordon (33:03)

He is 50 about to turn 57.

Scott Benner (33:08)

Oh, that's harsh.

I'm sorry.

Jordon (33:10)

Yeah.

But, no, my dad was not anymore

Scott Benner (33:14)

Learned in his time?

Jordon (33:15)

No.

Correct.

Scott Benner (33:18)

Jordan's like, listen.

We're on our own.

Okay?

Jordon (33:20)

Yeah.

I can't You know, going back to it, that's another reason I I, like, I have tried to take care of stuff myself is because I'm just like, I I can't.

Scott Benner (33:31)

Do you think that's because don't you think everybody feels like that about their parents to some degree?

Jordon (33:36)

Probably.

But I also know a lot of people whose parents like, I I mean, I listened to you talking about how you still you know, if if Arden needs help, you know, you're there to help.

Not that you're there all the time or your son, But it's just I don't know.

I guess everyone's a little different.

Scott Benner (33:54)

But, you know, they don't see it that way.

Right?

That you listen to me and you think if my father had half on the ball, this guy does, I'd be better off.

But my kids think I'm an idiot too.

Sure.

Jordon (34:05)

Yeah.

Yeah.

Yeah.

But that's that's because they grew up with you.

That way, they're not used to it being the I I wonder if they would feel differently now that they've, like, been to college, been out of house.

Jordon (34:15)

I mean, I'm sure they

Scott Benner (34:17)

feel surprised.

Yeah.

Well, listen.

I'm sure at some point, but I think it's part of the the natural, like, separation process.

The at some point, you have to feel like because I'm gonna go make my way in the world, and I know things.

Scott Benner (34:27)

And if you if you keep thinking, like, well, they're smarter than me.

I'll just sit here.

It's what's it?

Infanalyzing?

Is that the word?

Scott Benner (34:34)

I think it's a natural part of, like, leaving the nest to think that the the nest you're leaving is not as good of a situation as you could create for yourself.

Jordon (34:42)

Sure.

I there is there's some truth to that because I I you know, parents always say, like, I want you to have a better life than I did, and I think that to some extent, that's that's usually the case.

Right?

Scott Benner (34:54)

Like Yeah.

I mean, I tell my kids, good luck creating this life as good as I've created for you.

I don't think have to get out there and work your ass off because I've been working nineteen hours a day my whole life, so good luck.

Jordon (35:04)

Right.

Scott Benner (35:04)

Yeah.

Jordon (35:04)

Yeah.

Yeah.

Yeah.

I that's one thing that actually my mom my mom is super supportive, and, I mean, I've I've learned pretty much everything from her.

Scott Benner (35:16)

That's awesome.

Jordon (35:17)

She definitely supports me in that kind of, like, go out there and and try to try to do better, you know, where you can.

And I I think it's a lot more pertaining to, like, emotions and, like, just well-being.

Not, like, go out there and figure out how your career is gonna blah blah blah, this and that.

Mhmm.

It's generally more like how can you create, like, a fulfilling life for yourself, take care of yourself.

Scott Benner (35:45)

Well, that's

Jordon (35:46)

that's thoughtful.

Scott Benner (35:47)

I bet you her perspective is probably growing significantly since your dad's issues too.

Jordon (35:53)

Absolutely.

Because, I mean, I'll be blunt.

He's not an easy man and never has been to be around.

Scott Benner (36:03)

And now it's harder.

Jordon (36:03)

It's worse now.

Scott Benner (36:06)

Yeah.

Yeah.

Jordon (36:07)

It's funny because my mom's told me some people say that, like, their, you know, their parent or grandparent, whatever, was a nightmare, and then the disease hit, they became so sweet and blah blah blah.

And I'm just like

Scott Benner (36:20)

He doubled down.

For you.

Yeah.

My dad doubled down when he got it.

That's terrible.

Scott Benner (36:26)

Jeez.

That's horrible.

Yeah.

Ugh.

Well, hey.

Scott Benner (36:29)

Are there other autoimmune issues in your family?

Jordon (36:31)

See, I knew this was coming, and I was really excited for

Scott Benner (36:33)

it.

Go ahead.

Jordon (36:35)

My mom's brother has RA and hypothyroidism.

Scott Benner (36:40)

Mhmm.

Jordon (36:41)

And their uncle my mom's uncle passed away from MS.

They had another uncle who had diabetes that was so severe, he lost now this was supposedly type two, but I have some speculation about it.

He lost both feet and died at, like, you know, way too early.

And since my diagnosis, my mom had lunch with a cousin, and her cousin was like, oh, yeah.

I have Crohn's, and my daughter has type one.

Jordon (37:14)

So I was like, oh, okay.

So this goes like

Scott Benner (37:17)

Yeah.

It's a lot.

Have you considered getting the hell out of Maryland?

What's going on?

Jordon (37:20)

Seriously.

Oh, yes.

Absolutely.

Scott Benner (37:22)

Could be the marshes.

There are marshes there

Jordon (37:24)

on here.

Yeah.

Yeah.

Yeah.

The nasty soggy air.

Scott Benner (37:28)

And what is your what's your dad's diagnosis?

Jordon (37:31)

Early onset Alzheimer's.

Scott Benner (37:33)

Just that.

That's it.

Okay.

Jordon (37:35)

Yeah.

So no autoimmune from that side of the family.

A lot of type two, but, of course, everyone these days has type two diabetes.

So

Scott Benner (37:44)

It's just the thing to do.

Do you think you you well, that's in your do you think you know, there are plenty of people who would listen to this and go, I don't know one person has type two diabetes, I think.

Jordon (37:53)

You think?

Yeah.

Yeah.

Yeah.

Yeah.

Jordon (37:54)

I've always been, maybe it's a cultural thing.

My dad is black, and we come from, like, a, I would say, a southern family.

Mhmm.

So, you know, all of those kind of comorbidities, I guess, as they say.

You know, it got the high blood pressure, high cholesterol, all that kind of stuff.

Jordon (38:17)

So type two is I mean, it wouldn't make sense to not have it.

Scott Benner (38:23)

Yeah.

No.

I was talking to a a guy in his, like, late thirties yesterday.

He's of Spanish descent.

He was talking about how much type type two is in his family.

Scott Benner (38:31)

Yeah.

Yeah.

It's Yeah.

It's something I I did a little, just a a quick Google here.

Alzheimer's not classified as an autoimmune disease.

Scott Benner (38:40)

It is generally considered a neurodegenerative disease marked by brain changes such as beta amyloid plaques and Mhmm.

Tau tangles.

What is true is that immune systems seem to play a role in Alzheimer's.

The National Institute on Aging notes that inflammation and immune system problems have been linked to development of Alzheimer's and related dementias, and newer research is looking closely at immune dysfunction in the disease.

So, you know, there's a connection just you know, Alzheimer's isn't considered an autoimmune issue.

Jordon (39:13)

Right.

I mean, I think you you mentioned it a lot, systemic inflammation.

Scott Benner (39:18)

Just the bad news.

Jordon (39:19)

I mean, it may not something may not be autoimmune in nature, but you know?

Scott Benner (39:25)

I can't take obviously, you can't take Advil every day, okay, as an example.

But there are days if I take it, I just do feel better a little bit.

And Sure.

Like, I and I I just do wonder if I don't have, like, inflammation related issues that I maybe aren't autoimmune specifically, but you take that with me and my wife having, you know, thyroid and you mix it together and you get Arden.

You know?

Scott Benner (39:50)

Yeah.

Jordon (39:50)

There you go.

She was doomed from a

Scott Benner (39:52)

Doomed from the start.

Jordon (39:54)

Doomed from the start.

That's what I think sometimes.

Like, did you two not, like, look at each other's breeding papers before

Scott Benner (40:01)

you know?

Your mom and your dad?

Jordon (40:02)

Yes.

I'll tell

Scott Benner (40:03)

you right now.

If they were puppies, no one would have put them together.

Jordon (40:07)

Seriously.

Seriously.

But I I think a lot of that has also come to light later.

You know, my uncle is twelve years younger than my mom.

So I think I don't remember him having those issues when I was younger.

Jordon (40:21)

Maybe he did.

Scott Benner (40:22)

Mhmm.

Jordon (40:23)

All but I know that it's kicking his ass now.

Uh-huh.

Like

Scott Benner (40:27)

Yeah.

I'm sorry.

It's a lot of health issues.

It's it it overwhelms a overwhelms a family and a life.

You know?

Jordon (40:34)

Yeah.

But, you know, he's if you saw my uncle, this guy's, like, the healthiest looking person, positive.

He's a gym teacher.

Scott Benner (40:42)

Yeah.

Jordon (40:42)

You know?

Scott Benner (40:43)

Do you think about that?

Do you think about maybe I'll just put a stop to it and not have kids?

Jordon (40:47)

Oh, yeah.

Scott Benner (40:48)

You do think about

Jordon (40:49)

I have no plans to have kids because I've just well, like, not just the diabetes, but, like, mental health, all of it.

Scott Benner (41:00)

What about the mental health part?

Jordon (41:02)

I don't wanna have to have my own children that see me in that state or I mean, my my dad's parents are alive.

Scott Benner (41:12)

Mhmm.

Wait.

What about your mental health?

Don't I understand?

Jordon (41:16)

Oh, mental health, sorry, just meaning, like, the Alzheimer's and stuff

Scott Benner (41:20)

like kind of stuff.

Okay.

Jordon (41:21)

Like, that stuff does it does seem to run-in the family.

He's the first, I think, with early onset.

You know?

Everyone else has been old.

Scott Benner (41:30)

This is also something you're worried about for yourself then?

Jordon (41:33)

Yeah.

Not like I'm not going crazy about it.

Scott Benner (41:36)

Good.

Jordon (41:38)

I you know, you take care of yourself.

You do what you can.

You know, there's a lot of information out there.

See, I've changed my tune now.

I'm like, let's let's not play around.

The Honeymoon Phase and Insulin Adjustments

Scott Benner (41:49)

Two years later, Jordan's a different person.

Yeah.

You you wake up five hours late.

You're calling 911.

You're like, something's wrong with me.

Scott Benner (41:56)

Come yeah.

Get over here right now.

Jordon (41:58)

I need a helicopter.

Yeah.

Scott Benner (42:00)

Matter of fact, out of here.

Jordon (42:03)

Yeah.

Yeah.

So I I have kind of taken some of the lifestyle changes to heart that, you know, may lead to me a healthier life in preventing those issues.

But but to, what you were saying about kids, I don't I wouldn't want them to have to take care of me.

I wouldn't and I was saying, like, my dad's parents are alive, and it is really tough for them.

Jordon (42:28)

Like, I I that would kinda break my heart too.

And Yeah.

And on top of that, I don't I haven't even we haven't gotten there yet, but I haven't progressed to full on type one yet.

You know?

I'm honeymooning.

Scott Benner (42:41)

Oh, you are still in

Jordon (42:42)

the honeymoon.

So, I can only imagine, like, having to deal with myself and someone else's diabetes.

Scott Benner (42:49)

Jordan, you're having a very, very slow onset then.

Jordon (42:52)

I am.

Scott Benner (42:53)

Yeah.

How long has it been going?

A couple years, almost a year and a half?

Jordon (42:57)

So I was diagnosed in June, so it's been ten months.

Scott Benner (43:00)

I would also Just about.

I would also argue the six months prior to that.

Oh, yeah.

Yeah.

Yeah.

Scott Benner (43:05)

Yeah.

Basically.

Six months prior to that.

Yeah.

Some something's going on there too, obviously.

Scott Benner (43:08)

Oh, so what's it look like?

Are you are you using a pump?

Are you MDI?

What are you doing?

Jordon (43:14)

I just do one shot.

They started me on basal immediately.

It was, like, seven units.

Scott Benner (43:21)

Oh, okay.

Jordon (43:22)

And so I went from I was testing, the like, all the time initially, and I was I went from, like, 3 hundreds to 100 to in the nineties, like, in two days.

Scott Benner (43:41)

Mhmm.

Just with seven units of basil a day?

Jordon (43:44)

Yeah.

Scott Benner (43:45)

Okay.

Jordon (43:45)

So that it'd be and I was still confused about, like, type one, type two, but, like, from what I understand, that's it's it's a characteristic of maybe even though it went on for a long time, we kinda caught it early.

I have some some remaining beta cell function there.

Scott Benner (44:04)

You have you have lot Lotta probably.

Is that what they're calling it?

Jordon (44:07)

Lot.

Yeah.

Scott Benner (44:08)

Yeah.

Jordon (44:08)

And I I asked my endo about that, and she was like, I don't care what you call it.

Just just you know?

Scott Benner (44:15)

You have type one on a train that's taken forever to get in the station.

And yeah.

Yeah.

Did they mention GLP, like, low level GLP to help?

Jordon (44:24)

She was convinced that I would disappear if I started on a GLP and lost any weight, even if it was a microdose, I guess.

Scott Benner (44:34)

Okay.

Jordon (44:35)

I don't know.

But I I asked about, god, can I say it correctly, teplizumab or whatever it is?

Scott Benner (44:42)

Yeah.

Yeah.

Yeah.

TZL.

Jordon (44:43)

The yeah.

Mhmm.

The the drugs that prolong the honeymoon, and she was just I don't know.

Maybe it was the the a one c of fourteen point five that she was just kinda like, I think you're maybe a little a little too far gone.

Scott Benner (44:57)

She's like, the train is going slow, but it's pretty far out of the station.

Jordon (45:01)

It's here.

Yeah.

Yeah.

Gotcha.

So she said just continue with that.

Jordon (45:05)

And and so I was actually having a lot of lows because I exercise like crazy as well.

Yeah.

So I was just always always low.

And back in February, couple months wait.

Yeah.

Jordon (45:22)

Basically, last month, I was like, I can't keep doing this.

I'm at, like I just had food.

I shouldn't be at 55 and, you know, arrow down.

Scott Benner (45:32)

So on days when you're exercising hard, even though seven units of basal are too much?

Jordon (45:37)

Yes.

Scott Benner (45:38)

Yeah.

It's interesting.

Jordon (45:42)

Yeah.

It's confusing to me.

Scott Benner (45:44)

I would be so I have to tell you, not a doctor, not advice.

I would be super interested to see what micro dosing GLPs did for you.

Yeah.

2.5 is the smallest pen I'm talking about, way less than that.

And, like Yeah.

Scott Benner (45:55)

Just to see what what like, if if there's a if there's a tipping point in there where it could affect your blood sugar without affecting your hunger.

Jordon (46:03)

I would like to see that too because I I don't know.

It just doesn't I tried to stop taking insulin, which I I know you're not supposed to do, but I was really desperate here because I was I was getting scared.

Scott Benner (46:13)

Because of how low you were getting?

Jordon (46:15)

Yeah.

Like, it was every day at the same time, 55 double arrow down.

Like and I didn't believe it.

I was like, I need to finger prick because

Scott Benner (46:24)

And sure enough.

Jordon (46:25)

This is probably wrong, and I was in the forties every time.

Scott Benner (46:29)

Yeah.

You probably have the basal running, and all of a sudden, your pancreas is like, hey.

I can help now.

Jordon (46:35)

Yeah.

I'm here too.

I'm still going.

Yeah.

Yeah.

Jordon (46:37)

Which also I my c peptide rebounded after three months.

Scott Benner (46:43)

Interesting.

Jordon (46:43)

It went from being low to being normal.

They they said that's yeah.

You're honeymooning, and I was like, okay.

So I stopped taking the insulin.

Yeah.

Jordon (46:54)

It was February because I went to a Super Bowl party, and I had fun eating, let's just say.

And I I left the party at, like, my blood sugar was at, like, two seventy five.

And I was like, oh, yeah.

That's that's pretty high, but, you know, the basal always kicks in.

And whatever beta cell function I have left kicks in usually and brings me back down.

Jordon (47:20)

And then I woke up the next morning, and I was still at two seventy five.

Scott Benner (47:24)

Oh, and that did not work.

You didn't get that one.

Maybe it was because the Super Bowl sucked that your body didn't wanna help.

Jordon (47:30)

Right.

It was just so upset.

Yeah.

Yeah.

But, yeah, I was like, okay.

Scott Benner (47:35)

Not like that beautiful Super Bowl that my Eagles put on the year before.

Jordon (47:38)

That's right.

Scott Benner (47:40)

Where they trounced the Chiefs and made everybody in the country happy except for Kansas City.

Jordon (47:44)

See, I am not an Eagles fan, but I'm with you on that one.

Scott Benner (47:48)

It's okay.

Jordon (47:48)

I enjoyed that game.

Scott Benner (47:49)

I understand how you feel.

Jordon (47:50)

Was a great game.

Scott Benner (47:51)

I understand how you people feel down there.

I know what's going on.

Don't worry.

Jordon (47:54)

Hate the Chiefs even more.

So

Scott Benner (47:55)

Everyone does.

And it's it's Yeah.

It's because of what's his name.

Jordon (48:00)

Oh, yeah.

What's his name is just yeah.

Yeah.

We gotta get him off, all the commercials.

Scott Benner (48:04)

I've never seen such a good quarterback get hurt and everybody go, okay.

I'm alright with it.

Yeah.

Yeah.

It It's his time.

Scott Benner (48:10)

He's he's done he's done a thing.

He's he's made people not like him somehow.

It's interesting.

Jordon (48:15)

Yeah.

Yeah.

For sure.

Scott Benner (48:16)

Yeah.

Talented guy.

But nevertheless yeah.

Yeah.

It's the crybaby stuff, don't you think?

Jordon (48:22)

It is.

That's and people don't wanna hear that after you've gotten everything you could ask.

Scott Benner (48:28)

One yeah.

One did did you see in those, the betting scandals, especially around basketball?

They're talking to the referees that have been involved in it, And a lot of them are saying, like, look.

Nobody directly comes and tells you we want the Lakers to win, for example.

You know, we want we want we want this team to win.

Scott Benner (48:46)

We want that team to win.

But he's he's like, you understand what's good for the league, and you make those calls, and then the league assigns you to more games.

He's like, so nobody ever asks, but it kinda gets done like that.

Yeah.

And I'm telling you that that, the year before, like, like, three Super Bowls ago, I think, one, three Super Bowls ago, you watch that AFC championship game.

Scott Benner (49:11)

It feels like the ref is like, I am gonna throw this flag until the Chiefs win.

And Yeah.

Like, and it was really does.

It really does.

I mean, from an outside perspective, I I not I I had no skin in the game.

Scott Benner (49:22)

Like, I'm just watching it.

I'm like, man, it just feels like that guy's like, look.

If I gotta throw this flag on the ground one more time to make sure the Chiefs go to the Super Bowl, then that's what I'm gonna do.

Damn it.

Jordon (49:31)

I'm doing it.

Scott Benner (49:31)

Because Taylor Swift's boyfriend has gotta be successful.

And That's right.

Jordon (49:35)

Yeah.

Maybe everyone's just like, hey.

My daughters are really big Taylor Swift fans.

Scott Benner (49:41)

Yeah.

Yeah.

I would love to see him.

You know, right at the Chiefs making the Super Bowl, Taylor Swift will come.

I'll bring my daughter.

Scott Benner (49:46)

It'll be a whole and I don't think it's maybe conscious or not.

Like, I'm just saying, trust no one.

And

Jordon (49:52)

No.

Yeah.

I'm a huge conspiracy theorist, Scott.

Scott Benner (49:54)

I'm not at all.

I don't think that's a conspiracy.

I don't think that's a conspiracy to think that, like

Jordon (50:00)

It's just right in front of our faces.

Scott Benner (50:01)

So feel like you understand what is expected.

You have sway over it.

You make sway.

People then like you.

You get more things.

Scott Benner (50:10)

Like, I you know, it just feels like feels like that's kinda how the brain works.

There's a a pleasure center you're you're feeding a little bit.

Do you wear CGM?

Jordon (50:19)

I do.

So that's another thing.

Praise Kaiser or praise this doctor.

You know how they use the language that the medical language that no one understands, and it they don't mean anything by it, but everyone was like, Humalog, Basal, CG, and I'm just like, yeah.

Scott Benner (50:34)

Right.

Jordon (50:35)

Whatever.

Fine.

And so after finger sticking, like, 50 times a day for a week, I talked to my this was when the, the GAD results came back, and she was like, yeah.

It looks like you have type one.

And she was like, have you gotten the CGM yet?

Jordon (50:53)

And I was like, you mean the finger stick thing?

Like, yeah.

I have that.

I'm testing.

And she was like, no.

Jordon (50:59)

A CGM, it, you know, goes on your arm and stay and I was like, oh, that that might be nice to have.

So I don't know.

Yeah.

This was weird because I got diagnosed over the phone, went to the pharmacy, picked up my you know, it wasn't a whole thing.

So a lot got lost in a lot of information got lost on its way to me, I guess.

Jordon (51:21)

And, but, she got me on the g seven, the Dexcom g seven right away.

Podcast Impact and Final Thoughts

Scott Benner (51:28)

Because you brought this up, may I just plug the website for a second?

Juiceboxpodcast.com/interactive-dd.

It's also in the menu.

You can just click on the menu at the top right.

It's interactive defining diabetes.

Scott Benner (51:42)

It's, like, all the episodes from defining diabetes, but, like, broken down, like, just very simply.

Jordon (51:49)

Uh-huh.

Okay.

Scott Benner (51:50)

English, Spanish, French, German, Hindi, a bunch of different languages if you wanna go look at it that way.

So, basically, like, I'm looking top left a one c, your ninety day big picture report card, though it doesn't show the daily roller coaster of highs and lows.

You click on it.

It says a blood test measuring average blood glucose levels over the past two to three months via glycated hemoglobin.

And then you can if you want to click off of it or click listen to episode, it'll take you to the defining diabetes episode that defines a one c.

Jordon (52:21)

And Oh, crap.

Scott Benner (52:22)

Uh-huh.

And at the top, there's a little button that says challenge.

And if you click on challenge and then you hit start, it starts asking you questions.

An early morning increase in blood glucose caused by natural counterregulatory hormones.

Dawn phenomenon, algorithm, c peptide.

Scott Benner (52:37)

I say Dawn phenomenon.

Yes.

And then it goes to next one, and there's this little bar that runs down.

I think it takes, like, ten seconds.

It gives you time to answer to get to the next one.

Scott Benner (52:44)

So you can play, like, a quiz to learn the the definitions around diabetes.

Jordon (52:49)

Wow.

Scott, you're a digital creator if I've ever seen one.

Scott Benner (52:52)

I am on it.

You should see.

I just basically I just basically sit here now recording the podcast and working on the website, trying to turn the website into this great thing, which I think it is.

But now I'm about to start starting now to try to get the word out about it, and I'm gonna start with you.

So interactive dash d d if you wanna take the defining diabetes challenge or check out some terms that you might not know the definitions to.

Scott Benner (53:16)

Thanks.

Jordon (53:16)

That's perfect.

Scott Benner (53:17)

Look at me.

Jordon (53:18)

Yeah.

I I I used my own craziness to kinda learn everything I could.

Scott Benner (53:25)

You know, I tell this story constantly, but, like, the first time somebody on the podcast said, like, I don't I somebody said basil to me, I didn't know what the hell that was.

Like, you know, like, I didn't even know I was using basil insulin, but I was apparently.

And and Yeah.

If you don't have context for these words, it all be it's more difficult.

Jordon (53:42)

So I kept hearing the word bolus, and I was like, you mean, like, a bolus of food that, like, you swab,

Scott Benner (53:49)

Bolus you is my bolus dirty?

No.

No.

No, honey.

It's in the sink.

Scott Benner (53:56)

We already cleaned it.

Yeah.

Yeah.

Yeah.

Yeah.

Scott Benner (53:58)

I you people run out all the time.

I'm hungry all the time.

It's like I got diabetes.

I'm hungry all the time.

Hungry all the time.

Scott Benner (54:03)

Go figure out what amylin is.

There you go.

Like, they now now you have more context.

You can build bigger stories for yourself and and maybe change your pathway and understanding and get yourself to something better.

I don't wanna sound like a

Jordon (54:16)

That said, I had, no clue that, I think you and Jenny were talking about it that, like, the diabetes effect on your pancreas also extends to, like, hunger hormones and signaling.

And was like, oh my god.

That makes

Scott Benner (54:29)

so sense.

Yeah.

Because you are a you're a hungry little monkey sometimes, aren't you?

Jordon (54:34)

Oh, yeah, man.

I'm I'm thinking about food all day long.

My god.

Let's call

Scott Benner (54:39)

your episode hungry little monkey.

Can we do that?

No.

I don't I don't know.

We'll figure it out.

Scott Benner (54:43)

I I what the other one was good too.

What was the other title I said?

Jordon (54:48)

Oh, shoot.

Something about lungs.

Scott Benner (54:51)

Oh, no.

That's because I know your last name and no one else knows it.

And we're not gonna share we we're not gonna share your last name, so I can't use it.

Because it what do it's it's on it literally is without context.

So I'll figure something

Jordon (55:05)

out.

Yeah.

Scott Benner (55:05)

Don't you worry.

Yeah.

Everything's gonna be fun.

Jordon (55:07)

Yeah.

Yeah.

Yeah.

I gotta find some more interesting stuff

Scott Benner (55:11)

to talk about.

What what else what what made you wanna come on the podcast?

Jordon (55:15)

The shock and the very sudden, change in my lifestyle that was forced upon me.

Just kinda I was like, I have to like, I can't be the only one, so I gotta find somebody.

And I I found the podcast because my mom was like, I'm sure you could find a podcast that yeah.

So I looked up type one diabetes, and the first episode I found was the the dirty toilet bowl.

I don't know if you remember that one, but the the guy was, like, 25 and diagnosed around the same age.

Jordon (55:54)

And, like, seemed like he noticed a lot of the same signs.

And I was like, I don't know.

As time has gone on, I have kept, like, putting pieces of the puzzle together, listening to the podcast, and, you know, that's helping me piece things together even more.

So I I really wanted to just kinda come on and and

Scott Benner (56:15)

tell myself.

Glad you did.

And you're talking about

Jordon (56:17)

Yeah.

Scott Benner (56:17)

He had an there was an overgrowth in his toilet bowl because of all the sugar he was dumping.

Yes.

Jordon (56:23)

Yes.

And I actually had a friend see, we have, this mutual friend who has type one, and they've known each other since they were, like, really little.

And I think because she mentioned the black ring in the toilet bowl to me.

I was like, you know, whatever.

I sorry.

Jordon (56:43)

I didn't clean the bathroom.

You know?

Now hindsight, she was like, yeah.

I was actually wondering, like, if someone in the house had diabetes because I know that.

And I was like,

Scott Benner (56:53)

goddamn.

I never heard Yeah.

Jordon (56:58)

But, yeah, just funny stuff like that that I heard when I first started listening to the podcast, and I was like, no way There's someone who had the same thing that I thought was so bizarre happened to them.

Yeah.

Yeah.

Scott Benner (57:13)

It happens to people all the time.

So and and and where else are you gonna hear about that?

No one's gonna tell you about that.

That's not a not that's not a thing you're gonna read in a book or even

Jordon (57:23)

No.

We don't sit around the dinner table talking about our our

Scott Benner (57:26)

Have you all noticed the black ring in the toilet bowl?

Seems like it seems like something's growing in there, doesn't it?

It's something you guys okay?

Everybody alright?

Jordon (57:33)

I was, you know, having doing my own little science experiment.

That's

Scott Benner (57:38)

can I tell you something I was thinking about the other day?

I think this kind of I think it'll dovetail nicely into this.

So while you were talking earlier, I watched a, this is gonna here's a lot of words nobody's gonna care about.

Tacodermis smaradensis.

It's a small Japanese grass lizard with a long tail.

Scott Benner (57:54)

I have a a a I have a colony of them living in a tank over here.

And, one of them was trying to get up on this big leaf, like, running but slipping.

It looked like it was on a treadmill for a while.

It was absolutely absolutely delightful.

This is not why I bring them up.

Scott Benner (58:12)

But I I was looking at them the other day, and there's females in there, and they're gonna start laying eggs pretty soon.

And lizards are pretty simple animals.

Right?

Like, they need calcium.

And for some reason in captivity, they cannot get calcium the way they live in captivity, the way they get it out in the world.

Scott Benner (58:29)

So when you give them food Yeah.

You dust their food with just calcium.

Dust.

Right?

Yeah.

Scott Benner (58:34)

And if you don't do that Yeah.

They don't die right away.

They don't die in a week or a month or, like but their bodies slowly are lacking the nutrients, the building blocks, the necessities to keep them healthy.

And then if the females lay eggs, that uses up most of their calcium stores to create the eggs, and then they'll sometimes pass after that if they don't have enough calcium.

Or they can get bone, like, something called metabolic bone disease.

Scott Benner (59:00)

Like, there's all these things that can happen that will lead to their death, and it's just about calcium.

Removing yourself from the the I can't believe I said it correctly.

Tacidermis smaradens.

I I never can say it out loud, I got it right this time.

Thank you.

Scott Benner (59:15)

We putting them aside, like, there are so many little ingredients inside of you that you need to be healthy.

And you can take some of them away and not die, but it doesn't mean you're optimal.

And, you know, the Right.

Jordon (59:33)

And you might not notice it for a long time.

Scott Benner (59:35)

The lizard doesn't die the first day it doesn't have the calcium.

But the day that it rears its head, it's too late then.

And you seem okay every day between we stopped giving the lizard calcium and it died.

It seems I swear to god, they seem fine right up until they fall over dead.

And I think Yeah.

Scott Benner (59:54)

I don't know.

I was thinking about that the other day, and I don't know that people associate simple things like vitamin d, you know, your insulin.

These are things that are additive to your body that you need to add in in the right amounts to put yourself in an optimal situation.

And I it's hard to think about it that way, but keeping the lizards simplifies it for me.

And and

Jordon (1:00:20)

You understand it better.

Scott Benner (1:00:22)

Just for having watched one of them

Jordon (1:00:24)

Implementing it on a small scale.

Scott Benner (1:00:25)

For watching one of them have lived well with it and healthily, and, you know, I've had animals die too, and you don't know why exactly.

But I don't know.

I just I wish everybody Arden's friend called the other day.

They're on the phone.

She's she's of Indian descent.

Scott Benner (1:00:40)

She's brown person.

She just moved to, like, somewhere really cold, and she started talking about issues on the the the FaceTime talking.

The FaceTime.

Look at me.

Like, a thousand years old.

Scott Benner (1:00:50)

Yeah.

But bring the box on so I can see, I could see the Merv Griffin show.

Jordon (1:00:54)

Bring the box.

Scott Benner (1:00:55)

So I'm talking to her, and she's she's feeling a little run down.

I said, are you taking vitamin d?

And she goes, no.

I'm like, you're a brown person living where there's no sun.

Please take vitamin d.

Scott Benner (1:01:04)

What are you doing?

Jordon (1:01:05)

Your body's not too happy with you.

Scott Benner (1:01:07)

So I said I said, what are you doing?

And so I'm texting her a link.

I'm like, you buy this right now.

Take one every day.

Don't make me come up there and yell at you.

Scott Benner (1:01:14)

There's simple thing you just don't realize until, you know Yeah.

It's too late.

Or, by the way, it's never deficient enough to actually hurt you significantly, but you have a lessening of what your health could look like throughout your entire life.

You know what I mean?

Yeah.

Scott Benner (1:01:32)

And and just for for what?

Mhmm.

Like, eat an egg once in a while.

Have a little bit of red meat.

Have some chicken.

Scott Benner (1:01:38)

Do the thing.

Take a vitamin.

It's Jordan, please.

Are you taking vitamins?

Jordon (1:01:44)

Yeah.

Good.

Scott Benner (1:01:45)

Good job.

Thank you.

I appreciate that.

I appreciate that.

Every day, it's not hard.

Scott Benner (1:01:51)

They're right in front of me.

Right here.

I keep them on my desk.

Jordon (1:01:53)

It's funny.

I actually listened to the supplement episode recently, and, and started being a little more regular with them and taking digestive enzymes and all

Scott Benner (1:02:05)

that stuff.

Better?

Jordon (1:02:07)

Yeah.

Good.

I do.

Yeah.

I was having a not quite sure if I might be having my second of the the autoimmune trifecta flare up now, but I feel like I don't digest food anymore.

Scott Benner (1:02:21)

Well, you do you think it's celiac?

Do you think it's just you having losing some of that functionality from your pancreas with digestion?

Jordon (1:02:28)

Oh, the latter.

Because celiac, from what I understand, is would be a little more obvious after eating

Scott Benner (1:02:36)

Stuff like that.

Jordon (1:02:37)

Gluten in it, and and I don't necessarily have those symptoms.

Care

Scott Benner (1:02:41)

of It's not that difficult.

Look.

Really look.

Listen.

Jordon (1:02:44)

I'm just

Scott Benner (1:02:44)

I'm just taking out my vitamins right now.

I'll put them on my desk so that when you and I are done, I can take them.

I can I tell you the a funny vitamin story?

Because we are we're getting into it now.

Okay.

Jordon (1:02:54)

Yeah.

Do it.

Scott Benner (1:02:55)

So I'm driving I don't know.

I think I was driving home from Georgia when Arden was in school there.

Mhmm.

And, I bring my vitamins with me.

I'm a I'm an I'm a I'm one of those old people who just throws a pill in their pocket.

Scott Benner (1:03:07)

I have no problem with it.

I'm driving home, and I think, oh, I haven't taken my vitamins.

I just ate something.

I'll take my vitamins now.

And I take them, but I must not have drank enough with them and didn't realize it.

Scott Benner (1:03:20)

So

Jordon (1:03:21)

Yeah.

Scott Benner (1:03:21)

It's a half an hour later.

This is such a weird this is one of the weirdest experiences of my life.

I burped, and this powder cloud came out of my mouth.

And I thought

Jordon (1:03:36)

I've had the metamucive burst.

Scott Benner (1:03:37)

Thought, oh my god.

I'm gonna die.

This is it.

Like, right like, right here.

Oh, like, maybe I should pull over so I don't crash my car.

Scott Benner (1:03:44)

When when obvious imminent death happens to me next.

And I panicked for a second, and I was like, what the hell just happened?

And then it took me a minute, and I put two and two together, and I'm like, I don't think I drank enough with the vitamin if the capsule opened up in my way.

I don't know where.

Like, I'm not good enough with, like, with how the body is designed to actually, like

Jordon (1:04:07)

Yeah.

Like, in your esophagus?

Scott Benner (1:04:09)

Sub.

Right?

Like, that it's insane.

But I was, like, puff the magic dragon there for a second.

Yes.

Scott Benner (1:04:16)

It's like, oh, look at this.

It's really great.

Nevertheless, drink a lot of water with your with your pills.

That's what I wanted to say.

Jordon (1:04:23)

Yeah.

Good note.

Scott Benner (1:04:24)

Good note.

Good note.

I'm older than you by, like I'm, like, twice as old as you.

So do you like the information from the podcast enough to put up with listening to an old man's podcast, or does it not feel that way to you?

Jordon (1:04:40)

For sure.

I think well, my, my style of, like, communication is a little different, I think, from a lot of the younger people I'm around.

So I I feel like I I do kinda click with, like, your sense of humor and stuff a little bit more, so I I don't have a problem listening to it.

And I like the messages.

You know, every now and then I I'm like, oh, Scott.

Scott Benner (1:05:08)

You know?

Here he is.

Jordon (1:05:10)

But but, no, I I really enjoy it.

I think the way that you because the way people talk online, it's like, oh, this guy telling everyone to, you know, just take a bunch of insulin and blah blah blah, but you've repeated, you know, over and over about how like, that's not what you're telling me.

Scott Benner (1:05:29)

Right.

Jordon (1:05:30)

Do you encourage people not to just take your word as law?

And, that's that's exactly how I think.

Like, I'm not just going to settle for for one opinion, but I'll absolutely take good sounding advice and and try to look for

Scott Benner (1:05:48)

on me online?

I don't look.

Is that happening still?

Jordon (1:05:51)

Actually, you know what?

What I saw might have been from a couple

Scott Benner (1:05:54)

years ago.

There was a couple of years ago where, like, that I think people, like, misunderstood the idea of, like, that bold with insulin message.

And, like

Jordon (1:06:03)

Yeah.

It was seemed like it was around, like, heavy coke.

Scott Benner (1:06:06)

Yeah.

But, yeah, extra crazy during COVID.

Jordon (1:06:08)

Yeah.

Scott Benner (1:06:09)

Yeah.

Yeah.

Jordon (1:06:10)

Yeah.

Well, I mean

Scott Benner (1:06:12)

yeah.

Well, no.

Listen.

A lot of listen.

You don't realize how much of the crazy gets focused on, like, day to day life stuff.

Scott Benner (1:06:17)

And then when you take away the day to day life stuff, they got extra crazy, you gotta point it somewhere.

Jordon (1:06:22)

Yeah.

Yeah.

Well, and what do they call those people that are supposedly so pissed off with you, but they probably listen to every single episode and they Yeah.

Scott Benner (1:06:30)

I'll take it.

Jordon (1:06:31)

Yeah.

Scott Benner (1:06:31)

I don't care.

I don't I Yeah.

Possibly mean couldn't mean less to me.

I I I need the downloads.

We're good.

Jordon (1:06:37)

Alright.

Scott Benner (1:06:37)

It's a pretty it's a pretty simple system.

You know what I mean?

You listen.

I sell ads.

I get to keep making my podcast.

Scott Benner (1:06:44)

So Yeah.

Yeah.

Keep listening.

Thank you.

Jordon (1:06:47)

Whole life.

Scott Benner (1:06:50)

Have you ever seen the lion king?

Jordon (1:06:52)

Oh my god.

Scott Benner (1:06:53)

Do know Arden's never seen the lion king?

Jordon (1:06:55)

Yeah.

No way.

What is

Scott Benner (1:06:56)

how old

Jordon (1:06:56)

are you?

Scott Benner (1:06:57)

She'll be 22 in a couple months.

Jordon (1:06:59)

Oh my god.

Yeah.

Scott Benner (1:06:59)

She's try we try so hard to get her she's like, I don't care.

I'm like, okay.

So she really

Jordon (1:07:06)

I mean, she'll feel differently after she fight.

It's inevitable.

It's inevitable.

Scott Benner (1:07:10)

I don't think so.

Jordon (1:07:12)

She'll be like, what's wrong with

Scott Benner (1:07:13)

She's very stubborn.

Jordon (1:07:14)

This.

Yeah.

Scott Benner (1:07:16)

Very, very stubborn.

Jordon (1:07:18)

I love hearing the way that you guys you guys talk to each other.

It's hilarious.

Scott Benner (1:07:22)

I wish she'd come on the podcast more.

She's busy.

Jordon (1:07:25)

I was like

Scott Benner (1:07:26)

Going to college.

Jordon (1:07:26)

I was surprised to hear it how she spoke about diabetes in the podcast, but I understand it, and I think it's really funny.

Scott Benner (1:07:33)

Yeah.

She really is, she's got a different way of thinking about it.

That's for sure.

It's her own way.

So I I think it's a good I think it's a good lesson, though, to hear that, you know, whether you're an adult or a person who's, you know, taking care of a child with diabetes, your expectation of how people are gonna deal with things or think about them or even feel about them, your expectation has probably very little to do with how they're actually going to respond.

Scott Benner (1:07:58)

So

Jordon (1:07:58)

Oh, for sure.

Yeah.

Yeah.

Because I thought my one close friend with type one when I was diagnosed was like, oh my god.

I'm so excited to have, you know, someone else.

But then but I really like talking about it, honestly.

Jordon (1:08:14)

Mhmm.

And maybe that's because I'm so new, and and she's been in it for a decade.

But it it's just I I'm not met with the same energy, you know

Scott Benner (1:08:23)

She don't

Jordon (1:08:23)

about it and Yeah.

She doesn't care.

Yeah.

And, and that's fine.

Scott Benner (1:08:29)

Yeah.

No.

I just think it's I think it's valuable because I think a lot of times either people can judge themselves against others.

Like, I guess this is how I should feel about it or this is how I should think about it.

Or parents, I think, put their feelings about it onto their kids.

Scott Benner (1:08:42)

They're like, well, this is how they're gonna deal with it or I know they're gonna grow up fine.

Like, you you don't know how anybody's gonna grow up with Like, this is not a Right.

This is not a preplanned thing.

Just because it's the way you handle it doesn't mean it's the way they're gonna handle it.

You might be better or worse at it than they are or will be, and there's not a lot you can do about that.

Scott Benner (1:09:00)

You you know?

Jordon (1:09:00)

No.

Not at all.

Because I mean yeah.

Yeah.

Yeah.

Jordon (1:09:04)

I'm sorry.

I just saw it's a long time.

Scott Benner (1:09:06)

Yeah.

Yeah.

Jordon (1:09:06)

Been talking for a long time.

I'm sorry.

Scott Benner (1:09:08)

No.

Don't be sorry.

What are sorry about?

But we will we will wrap up, though.

This was lovely.

Scott Benner (1:09:13)

I do really appreciate Alright, man.

Hold on one second for me.

You were terrific.

Thank you for doing this.

I really appreciate it.

Jordon (1:09:18)

Thank you, Scott.

Yeah.

Scott Benner (1:09:26)

Today's episode of the Juice Box podcast was sponsored by the new Tandem Mobi system and Control IQ plus technology.

Learn more and get started today at tandemdiabetes.com/juicebox.

Check it out.

This episode was sponsored by Touched by Type one.

I want you to go find them on Facebook, Instagram, and give them a follow, and then head to touchedbytype1.org where you're gonna learn all about their programs and resources for people with type one diabetes.

Scott Benner (1:09:56)

Today's episode of the juice box podcast is sponsored by the Eversense three sixty five.

You can experience the Eversense three sixty five CGM system for as low as $199 for a full year.

Visit eversincecgm.com/juicebox for more details and eligibility.

Okay.

Well, here we are at the end of the episode.

Scott Benner (1:10:19)

You're still with me?

Thank you.

I really do appreciate that.

What else could you do for me?

Why don't you tell a friend about the show or leave a five star review?

Scott Benner (1:10:28)

Maybe you could make sure you're following or subscribe in your podcast app, go to YouTube and follow me, or Instagram, TikTok.

Oh, gosh.

Here's one.

Make sure you're following the podcast in the private Facebook group as well as the public Facebook page.

You don't wanna miss please, do you not know about the private group?

Scott Benner (1:10:48)

You have to join the private group.

As of this recording, it has 74,000 members.

They're active talking about diabetes.

Whatever you need to know, there's a conversation happening in there right now.

And I'm there all the time.

Scott Benner (1:11:01)

Tag me.

I'll say hi.

Check out my algorithm pumping series to help you make sense of automated insulin delivery systems like Omnipod five, Loop, Medtronic seven eighty g, Twist, Tandem Control IQ, and much more.

Each episode will dive into the setup, features, and real world usage tips that can transform your daily type one diabetes management.

We cut through the jargon, share personal experiences, and show you how these algorithms can simplify and streamline your care.

Scott Benner (1:11:32)

If you're curious about automated insulin pumping, go find the algorithm pumping series in the Juice Box podcast.

Easiest way, juiceboxpodcast.com, and go up into the menu.

Click on series, and it'll be right there.

Hey.

What's up, everybody?

Scott Benner (1:11:45)

If you've noticed that the podcast sounds better and you're thinking, like, how does that happen?

What you're hearing is Rob at Wrong Way Recording doing his magic to these files.

So if you want him to do his magic to you, wrongwayrecording.com.

You got a podcast?

You want somebody to edit it?

Scott Benner (1:12:03)

You want Rob.

READ FULL TRANSCRIPT

```

#1868 Doomed From the Start

Jordan ignored severe weight loss and fatigue for months before a shocking Type 1 diabetes diagnosis at 25. Listen to his humorous, cautionary tale about his slow-onset honeymoon phase.

Proudly supported by

```html

Key Takeaways

• Jordan was diagnosed with Type 1 diabetes at 25 after ignoring months of severe symptoms, including a 40-pound weight loss, extreme fatigue, and excessive urination.
• A trip to the dentist for oral lesions (lichen planus) was an early warning sign of a potential autoimmune issue before his official diagnosis.
• Despite his age, Jordan's primary care doctor quickly suspected Type 1 diabetes, promptly ordering GAD-65, c-peptide, and zinc transporter antibody tests.
• Jordan is currently experiencing a slow-onset "honeymoon phase," requiring only a small basal insulin dose and frequently experiencing lows due to intense exercise and rebounding beta cell function.
• Basic health maintenance, such as taking vitamins and digestive enzymes, can be crucial for overall well-being and managing the systemic inflammation often associated with chronic conditions.

Resources Mentioned

• Touched by Type 1
• Tandem Mobi System
• Eversense 365 CGM
• Interactive Defining Diabetes
• Wrong Way Recording

FULL EPISODE TRANSCRIPT

Introduction and Sponsors

Scott Benner (0:00)

Welcome back, friends, to another episode of the Juice Box podcast.

Jordon (0:14)

Hello.

My name is Jordan.

I am from Maryland, and I have type one diabetes.

I was diagnosed close to a year ago.

I am about to turn 26 years old.

Scott Benner (0:29)

If you're looking for community around type one diabetes, check out the Juice Box Podcast private Facebook group.

Juice Box Podcast, type one diabetes.

But everybody is welcome.

Type one, type two, gestational, loved ones, it doesn't matter to me.

If you're impacted by diabetes and you're looking for support, comfort, or community, check out Juice Box podcast, type one diabetes on Facebook.

Scott Benner (0:54)

If you're living with type one diabetes, the After Dark collection from the Juice Box podcast is the only place to hear the stories that no one else talks about.

From drugs to depression, self harm, trauma, addiction, and so much more.

Go to juiceboxpodcast.com, up in the menu, and click on after dark.

There, you'll see a full list of all of the after dark episodes.

Nothing you hear on the juice box podcast should be considered advice, medical or otherwise.

Scott Benner (1:24)

Always consult a physician before making any changes to your health care plan.

This episode of the juice box podcast is brought to you by my favorite diabetes organization, touched by type one.

Please take a moment to learn more about them at touchedbytype1.org on Facebook and Instagram.

Touchedbytype1.org.

Check out their many programs, their annual conference, awareness campaign, their d box program, dancing for diabetes.

Scott Benner (1:53)

They have a dance program for local kids, a golf night, and so much more.

Touchedbytype1.org.

You're looking to help or you wanna see people helping people with type one, you want touched by type1.org.

Today's episode is also sponsored by the Tandem Mobi system with Control IQ plus technology.

If you are looking for the only system with auto bolus, multiple wear options, and full control from your personal iPhone, you're looking for Tandem's newest pump and algorithm.

Scott Benner (2:25)

Use my link to support the podcast, tandemdiabetes.com/juicebox.

Check it out.

The podcast is also sponsored today by the Eversense three sixty five, the one year wear CGM.

That's one insertion a year.

That's it.

Scott Benner (2:42)

And here's a little bonus for you.

How about there's no limit on how many friends and family you can share your data with with the Eversense Now app?

No limits.

Eversense.

A Slow and Ignored Onset

Jordon (2:51)

Hello.

My name is Jordan.

I am from Maryland, and I have type one diabetes.

I was diagnosed close to a year ago.

I am about to turn 26 years old.

Scott Benner (3:05)

Oh, well, about to be happy birthday.

Good for you.

Jordon (3:08)

Thank you.

Thank you.

Scott Benner (3:09)

Maryland, the state that connects easily to Pennsylvania, no one realizes it.

Jordon (3:13)

That's right.

Yeah.

Mhmm.

Sometimes it, depending on how far into Pennsylvania, it could be, like, an hour drive or a four hour drive to get there, though.

Scott Benner (3:23)

Yeah.

My son went to college in Central PA.

Jordon (3:26)

And Oh, really?

Scott Benner (3:26)

Yeah.

And he had he's a friend that lives in Maryland, his parents would show up at baseball games, and I'd always be like, how long did it take you to get here?

And they were like, oh, forty five minutes?

And I was like, wait.

What?

Scott Benner (3:36)

Long.

Yeah.

That's okay.

Jordon (3:39)

That's kinda bizarre.

Scott Benner (3:40)

I kinda don't understand the map, Jordan.

That's all.

Jordon (3:43)

But, yeah, me neither.

Scott Benner (3:44)

What precipitated this diabetes thing?

Was anything going on?

Was your health weird, or did it come on all at once?

What was the process?

Jordon (3:51)

Truthfully, Scott, do not know.

I used to think that I was super in touch with my health.

Truth be told, I just kinda got sick December 2024, and then it was like I I never knew if I was gonna wake up in the morning and feel perfectly fine or feel like death.

Mhmm.

And it took me a good six months before I went in to the doctor, and I I just went in for a physical.

Jordon (4:20)

I wasn't even prepared to to be like, hey.

I've been feeling ill for a little while.

I just thought, you know, we'll see how things go.

Scott Benner (4:29)

Were you, like, 24, 25 years old at that point?

Jordon (4:33)

Yeah.

So I just I had just turned 25 when I got diagnosed.

Scott Benner (4:37)

Any health issues throughout your life prior to that?

Jordon (4:40)

Asthma, allergies.

That's pretty much it.

Just the asthma and allergy.

Scott Benner (4:44)

Nothing that makes you predisposed to just accept not feeling well randomly for no reason?

Jordon (4:50)

Correct.

Yeah.

Yeah.

Nothing like that.

Scott Benner (4:51)

Why'd you do that then?

Think I I know we've been talking for two minutes, but, like, think on that for a second.

Like, how come you felt so horrible periodically and were just like, I

Jordon (5:02)

have never been, like, perfect in terms of of, you know, eating well, exercise you know, like, I'll I'll eat a crappy meal with my friends kinda frequently, you know, interspersed with my healthy meals and stuff like that.

So I kinda figured, like, hey.

Maybe I'm I'm just so inconsistent with my health that, you know, I'm just some days, I wake up feeling crappy, and sometimes I feel good.

Scott Benner (5:30)

This is what it feels like when your body's processing a half a pizza and a bag of Doritos.

Jordon (5:34)

Exactly.

Scott Benner (5:35)

I see.

And are you living at home or alone by then?

Jordon (5:39)

I, live at home.

Scott Benner (5:41)

Okay.

So so so you there are people around.

Like, you could turn to your mom and say, I don't feel good, but you just kinda don't do that.

Jordon (5:50)

Yeah.

Unless it was, like, really taking its toll on me unless, you know, I was staying in bed for five hours longer than I usually did, then she you know, it would be obvious to everyone else, but I I just didn't really mention it.

Scott Benner (6:06)

And that was happening sometimes?

Get up in the morning, you're like, I can't I can't function?

Jordon (6:11)

That happened more frequently, towards the diagnosis.

So, just for reference, I usually wake up around seven in the morning.

There were a couple mornings that I woke up at eleven or noon.

It just it didn't make sense to me, and that was worrisome.

I was like, what the hell is you know?

Scott Benner (6:33)

Oh, wow.

Like, you'd open your eyes and think, how is it possibly 11AM something's wrong?

Jordon (6:38)

Yeah.

There was one morning I think I woke up at, like, nine, and I was I couldn't move my body.

And so I was like, maybe I just need an extra thirty minutes to sleep, and then I woke up at one in the afternoon.

Scott Benner (6:52)

Because you know how frequently people wake up and can't move.

Jordon (6:57)

Honestly, though, that had never happened to me.

Scott Benner (7:00)

Yeah.

That's why I should have panicked you.

Jordan, what's Why is everyone not as worried about themselves as I am?

I wake up and I have that feeling.

I immediately I'm screaming.

Scott Benner (7:12)

So what?

Everybody here shot.

Jordon (7:13)

You know?

Scott Benner (7:13)

I need help.

Yeah.

Yeah.

Well I Okay.

How long does this go on for, Jordan, before you, like, you speak up or do something?

Jordon (7:23)

I would say probably, like, two months.

Like, from my birthday in springtime to I was diagnosed in June.

So, yeah, a couple months.

Scott Benner (7:36)

Wow.

Jordon (7:37)

But I think from the first sorry.

I don't I don't wanna be gross or too specific here.

But

Scott Benner (7:42)

No.

Definitely be gross and too specific.

Jordon (7:44)

Go ahead.

In December so I was diagnosed in June 25.

In December 24, I went over to a friend's house, and we were just hanging out for most of the day.

And it was Christmas time, so they had those, like, Godiva snowmen or whatever it is.

Mhmm.

Jordon (8:07)

And I was, like, I was housing on the sky.

Like, I ate enough to kill a baby elephant and went home later that night, and I threw up for probably, like, five hours.

I was going to the bathroom, like, every ten minutes maybe.

Scott Benner (8:29)

Jordan, what what they call, coming out of both ends?

Jordon (8:32)

No.

No?

No.

Nothing was

Scott Benner (8:35)

were peeing and throwing up?

Jordon (8:37)

I was just throwing up.

Scott Benner (8:39)

Oh, you say oh, going to the bathroom.

I thought you meant when you say going to bathroom.

Jordon (8:42)

I'm sorry.

Scott Benner (8:43)

No.

Don't be sorry.

That's me.

I thought you meant

Jordon (8:45)

I made it to the bathroom.

That's why I added it in the story.

Scott Benner (8:48)

The vomit.

Okay.

Jordon (8:50)

Yeah.

People give you a,

Scott Benner (8:51)

like, side eye because those things are kind of expensive, those little chocolates where they're like, what's up with him?

You you know what I mean?

Jordon (8:57)

Yes.

But I have always I've always been the kind of guy that, like, if I'm hungry, I'm gonna eat all the food and I don't really care.

Scott Benner (9:05)

Anybody thinks about it?

Yeah.

Yeah.

I mean, DKA.

Right?

Scott Benner (9:10)

No.

No?

Okay.

Go on.

What happened?

Jordon (9:13)

This was this was six months before I went to the doctor.

Scott Benner (9:17)

Oh, okay.

Keep going.

Jordon (9:18)

So I was like, oh god.

Dying.

Called out of work for the next two days, but, honestly, I was fine.

That little bout finished up.

I woke up the next morning fine.

Jordon (9:30)

It was so weird.

I think I went on being okay for another few months before that, like, terrible fatigue set in.

Scott Benner (9:39)

Yeah.

Jordon (9:39)

And then I was like, okay.

Let's let's schedule

Scott Benner (9:43)

I go to doctor.

Yeah.

Hey.

You call out of work.

Do you say, hey.

Scott Benner (9:47)

I ate a bunch of, Santa Claus chocolates and threw up.

I can't come in, or you just make something

Jordon (9:52)

Scott, I'm a master at making up excuses for getting out of work.

I don't remember what I said, but they were like, oh my god, you know, please take care of yourself.

Yeah.

Scott Benner (10:03)

I I don't know many people are gonna have contacts for this, but the comedian, Arty Lang, used to be on the Howard Stern Show, and, there'd be there's calls of him, like, calling and saying he couldn't come in to do the show that day, he was like, hey.

I'm I'm not feeling great.

He was on heroin.

He was on heroin, by the way.

It was like he would but he would do he would do a little cough.

Scott Benner (10:24)

Yeah.

Jordon (10:26)

Who knows what they thought of me, but I, again, didn't care.

Scott Benner (10:30)

Don't make me sit back, Jordan, and think about the arty days on the Stern Show.

They were perfect.

Jordon (10:34)

Oh my god.

Scott Benner (10:35)

But you have no idea what I'm talking about.

It's okay.

Jordon (10:37)

I don't.

Scott Benner (10:38)

You should Google Arty Lang's nose at some point in your life.

Jordon (10:41)

For it now.

Yeah.

Scott Benner (10:42)

Yeah.

Just to see what just to see what the cocaine could do to you.

Jordon (10:45)

Right?

Yeah.

Exactly.

Scott Benner (10:46)

Jordan, are your parents not involved at all?

How are you just what if you just set up a physical?

Jordon (10:51)

I've been like this since I was younger.

I always just kinda took care of business before it could get to my parents.

And then when they found out things were going okay, they were like, oh, good job, Jordan.

Scott Benner (11:04)

You know?

Lot of kids?

Lot of brothers and sisters?

Jordon (11:07)

Nope.

Just me and one older brother.

Scott Benner (11:09)

What are you protecting them from?

Jordon (11:11)

Oh, god.

I don't know.

Scott Benner (11:14)

Come on.

Does it about seem like she can't take it?

She get upset easily?

What it's it's simple psychology.

Figure it out, Jordan.

Scott Benner (11:20)

Why do you keep it from them?

Jordon (11:22)

Yes.

What you said is is pretty spot on.

Scott Benner (11:25)

Okay.

Alright.

Jordon (11:26)

I just to to kind of save them from stressing out because they're both emotional people, and I'm an emotional person.

So I think it also stressed me out when my parents got concerned.

Scott Benner (11:39)

Makes sense.

Jordon (11:39)

So I was just like, let me take care of this.

And especially at 25, I was like, you know, I can I can schedule my own doctor's appointment?

Scott Benner (11:50)

Well, you feel like an adult, first of all.

And secondly, you're not, by the way, but you feel like an adult.

And, by the way, I think I had a kid when I was 27.

I wasn't an adult then either.

But also That's crazy.

Scott Benner (12:00)

Yeah.

Also, you want to yeah.

I know younger people now are like, when did you have children?

That's not happening.

Jordon (12:05)

Hard to imagine.

Scott Benner (12:06)

Yeah.

Yeah.

But you you, you know, you're like, look.

I'm old enough to take care of this.

Also, I'm a healthy person.

Scott Benner (12:12)

There's nothing really wrong.

You just keep thinking it's gonna go away.

Right?

Right.

Correct.

Scott Benner (12:16)

Yeah.

I gotcha.

Okay.

So you head off to the doctor.

Do they pick it up at the physical?

The Dentist and the Physical

Jordon (12:22)

Well, you know, the in the the office, my visit with the doctor was fine.

Blood pressure was good, heart, lung, blah blah blah, all that crap.

But I oh, I forgot to mention this.

I am gonna backtrack.

Sorry.

Jordon (12:35)

But it it

Scott Benner (12:35)

Go ahead.

Don't be sorry.

Jordon (12:37)

Fills in the story nicely.

I had gone to the dentist a couple months earlier, and she found she used the word lesions, which creeped me out.

Some lesions in my mouth and said this looks like oral lichen planus.

I don't know if you've ever heard of that.

Scott Benner (12:55)

Okay.

Jordon (12:56)

But she said it can often be triggered by an autoimmune issue.

And I was like, I I don't have any autoimmune issues.

And the hygienist was like, have you been to the doctor recently?

Got your labs look good?

And I was like, well, yeah.

Jordon (13:11)

They looked fine three years ago.

Scott Benner (13:13)

Three years ago?

They

Jordon (13:15)

were perfect.

That was the last time I had been to the doctor.

So I was like, you know, I was just I was panicking a little bit and just trying to still cover it up at that point.

Scott Benner (13:26)

If I can I just say for dentists who are listening, the reason we don't trust you, and we should, dentists are a good first line of defense for bigger issues?

Yes.

But we don't know if you're trying to upsell us some peroxide trays or if there's really a problem.

You understand?

Jordon (13:39)

Seriously.

Yeah.

Scott Benner (13:40)

You seem like a Charlton once in a while, dentist.

Try not to don't be so thirsty with the money all the time, and maybe we'd listen to you when you said there was

Jordon (13:49)

a problem.

I don't trust you.

Scott Benner (13:50)

Mhmm.

I know.

I know.

Go ahead.

Jordon (13:52)

So yeah.

But because at first, was like, oh, this could be precancerous and blah blah blah blah blah, and then she came up with the autoimmune thing, which also didn't make sense to me because I'm like, why would I have mouth cancer or an autoimmune issue?

Scott Benner (14:08)

Do you have any context for what autoimmune means when she's saying that?

Jordon (14:12)

No.

Scott Benner (14:13)

Okay.

Jordon (14:14)

Not none whatsoever.

And, so I figured this was in about April, I think.

So two months before my diagnosis, and that's when I set up my physical because I was like, okay.

It's, you know, probably best to see.

So I mentioned into this.

Jordon (14:31)

Yeah.

Why not?

What the hell?

Scott Benner (14:33)

Just in case my lesion is mouth cancer, why don't I maybe take a looky loo and see what happens?

Right.

Right.

What's your expectation going to that doctor?

Are you thinking, like, there's nothing wrong, or do you are you worried something's really up?

Scott Benner (14:48)

Let's talk about the Tandem Mobi insulin pump from today's sponsor, Tandem Diabetes Care.

Their newest algorithm, Control IQ Plus technology and the new Tandem Mobi pump offer you unique opportunities to have better control.

It's the only system with auto bolus that helps with missed meals and preventing hyperglycemia, the only system with a dedicated sleep setting, and the only system with off or on body wear options.

Tandem Mobi gives you more discretion, freedom, and options for how to manage your diabetes.

This is their best algorithm ever, and they'd like you to check it out at tandemdiabetes.com/juicebox.

Scott Benner (15:28)

When you get to my link, you're going to see integrations with Dexcom sensors and a ton of other information that's gonna help you learn about Tandem's tiny pump that's big on control.

Tandemdiabetes.com/juicebox.

The Tandem Mobi system is available for people ages two and up who want an automated delivery system to help them sleep better, wake up in range, and address high blood sugars with auto bolus.

This episode of the Juice Box podcast is sponsored by the Eversense three sixty five.

Get three hundred and sixty five days of comfortable wear without having to change a sensor.

Scott Benner (16:06)

When you think of a continuous glucose monitor, you think of a CGM that lasts ten or fourteen days.

But the Eversense three sixty five, it lives up to its name, lasting three hundred and sixty five days.

That's one year without having to change your CGM.

With the Eversense three sixty five, you can count on comfort and consistency three hundred and sixty five days a year because the Eversense silicone based adhesive is designed for your skin to be gentle and to allow you to take the transmitter on and off to enjoy your shower, a trip to the pool, or an activity where you don't want your CGM on your body.

If you're looking for comfort, accuracy, and a one year wear, you are looking for Eversense three sixty five.

Scott Benner (16:53)

Go to eversensecgm.com/juicebox to learn more.

Jordon (16:59)

Oh, I'm absolutely thinking nothing's wrong.

Even though I'm sleeping until noon, have lesions in my mouth, and yeah.

Yes.

And by the way, I've lost 40 pounds.

And yeah.

Scott Benner (17:16)

I think this podcast is just a look into all of your stupidity and anxiety.

Not you, Jordan.

Everybody everybody listening.

I love I love these first of all, I'm glad you're alive.

But, like Thank you.

Scott Benner (17:27)

You know, like, listening back in con like, you know, with some context in hindsight.

Mhmm.

Really, like, I everyone's listening going like, oh my god.

What a dumbass.

Why didn't he go to the doctor?

Scott Benner (17:38)

But you all do the same thing.

So yeah.

I'm the only one who screams the minute something's wrong.

Jordon (17:44)

Yeah.

Yeah.

And so I well, I had lost all that weight, but I also began working as a personal trainer shortly before that point, and I started rock climbing, like, pretty intensely.

So I was doing all this crap, and I figured, hey.

Maybe maybe all of this is because I'm I'm overtraining a little bit anyway.

Scott Benner (18:08)

Can I interject one more time?

I'm sorry.

I know I'm choppy up here, but but, like, I want everyone to listen to what just got said there.

Jordan, 25 years old, has turned into a personal trainer.

You're out there giving him your money.

Scott Benner (18:21)

He can't figure out what's

Jordon (18:22)

how to take care of myself.

Scott Benner (18:23)

He can't take care of himself, and you're paying him to help you take care.

Just open up chatty p t and ask it for a workout plan.

Okay?

I'm sorry Jordan's out of business now, but, like

Jordon (18:33)

Do it.

Scott Benner (18:33)

Stop thinking everybody knows something.

You shouldn't trust me.

I don't know what you're doing right now.

Like No.

Go ahead.

Scott Benner (18:40)

Go ahead.

Sorry.

Jordon (18:43)

Oh, but yeah.

That was that was pretty shameful moment for me.

So I'm in the doctor.

I got the blood drawn, and I walked out.

It's springtime.

Diagnosis and the A1C Shock

Jordon (18:54)

It's beautiful outside, Scott.

And I left the doctor.

I was like, I am so healthy.

You know?

I'm feeling great.

Jordon (19:01)

I just, just went to the doctor.

I'm a big boy now doing that by myself.

And, so the lab results start coming in later that afternoon.

And it's like, oh, that looks good.

Electrolytes were a little bit off, but nothing crazy.

Jordon (19:21)

And then the, whatever it's called, metabolic panel comes in, and it's like, good.

Good.

Good.

Good.

And then glucose is three fifty seven.

Jordon (19:30)

And I was like, oh, well, that's, you know, that's a bit high.

Scott Benner (19:35)

Seems wrong.

Could be feeding those lesions, maybe, all that sugar.

Jordon (19:39)

I was like, maybe.

I I came up with everything, every excuse, and I was in the car with two friends at the time.

And one of them is is very smart, still love her, but at this point in time, I was I was ready to jump back and strangle her.

But she was like, oh, you know, like, if you're if you eat late at night, you know, maybe your food wasn't didn't have time to digest, and so you have and I was like, yeah.

But it's 03:57.

Jordon (20:09)

That's pretty

Scott Benner (20:10)

Shut up, Patty.

You don't know what you're talking about.

Jordon (20:12)

Yeah.

I was like I don't know.

I I was, like, shivering, I swear.

And my friends were just kinda like, what's wrong with you?

And then I went home and told my mom, and she just looked at me, like because my mom is she spent a lot of time working in the center for biologics, and, you know, she's she's familiar with, like, islet cell transfers.

Jordon (20:40)

So she knew all about diabetes and all that stuff before I did, I guess.

She her face was not very comforting, just to say the least.

Scott Benner (20:50)

Yeah.

Jordon (20:51)

And so I was like, okay.

It's fine.

You know, we'll wait for more.

And then the a one c came in, and I almost passed out because it was fourteen point five.

Scott Benner (21:03)

Wow.

Jordon (21:04)

And I was just kinda like, okay.

So I guess

Scott Benner (21:09)

I have diabetes.

Jordon (21:10)

That's that's something Yeah.

Scott Benner (21:12)

Connected there?

Do you say I have diabetes when you see the a one c?

Jordon (21:16)

I think I knew, but verbally, I was not acknowledging it.

I knew, but I was still trying to, I think it goes back to, like, not wanting to, you know, have everyone be concerned and stuff.

Scott Benner (21:31)

You all think backwards.

Can I just say can if you put me in this exact situation, here's what happens to me?

I have something I I get a little bit of, what they call information.

Then and then if it's enough to actually be concerned about, which is where you are, then I deep I deep dive it, and I make sure I understand all the possibilities, whether they're uncomfortable or not.

And then I wait to get the rest of the information so that when the rest of the information comes, I can apply what I've learned to the info the new information I have and come to a reasonable conclusion.

Scott Benner (22:00)

Then whatever that conclusion is, we move forward.

Jordon (22:03)

Well, listen, Scott.

Scott Benner (22:04)

Yeah.

Jordon (22:05)

Congrats on being level headed, but some of us, when we do a deep dive, get even more crazy and anxious and paranoid.

Scott Benner (22:14)

That doesn't happen to me.

I just got because I think I've been through so much.

I'm expect something terrible to happen.

I'm okay.

I just wanna I just wanna know, like, what am I supposed to do when that occurs.

Scott Benner (22:26)

Yeah.

And then if it doesn't occur, it's like winning the lottery.

Jordon (22:30)

Yeah.

Scott Benner (22:30)

Yeah.

Like, everybody's like, oh, I I found a lump.

I didn't wanna get I didn't wanna get it looked at.

Get it looked at.

It's probably nothing, and you're gonna feel like you won.

Scott Benner (22:37)

Like and if it and if it is something, maybe it saves your life.

Yeah.

Little bit of bad news

Jordon (22:43)

happening here.

Scott Benner (22:43)

Little bit of bad news, lot of good news afterwards.

And Yeah.

Sure some people die.

But, like, if that's me, I also I I also won't care because I'll be dead.

Do you understand how it's so simple.

Scott Benner (22:55)

I can't explain the world to you people every day.

Okay?

This is very, simple.

That's all.

You're either gonna live or you're

Jordon (23:03)

gonna gonna say something like this to me when I talk.

Scott Benner (23:06)

Oh, Jordan, you're a listener.

That's nice.

I appreciate your support.

Jordon (23:09)

I am yeah.

Yeah.

Scott Benner (23:10)

Okay.

Yeah.

It's very simple.

You're either gonna live or you're gonna die.

If you're gonna live, do it as well as you can.

Scott Benner (23:15)

And if you're gonna die, it doesn't matter.

Do you understand?

You'll be dead.

Jordon (23:20)

Yeah.

Scott Benner (23:20)

You know who's not worried about how they feel right now?

Benjamin Franklin.

Jordon (23:24)

Dead.

Dead.

Scott Benner (23:25)

Yeah.

Yeah.

He couldn't possibly care less nor would he be able to if he could.

Do you understand?

He's gone.

Jordon (23:31)

Very true.

Scott Benner (23:32)

I can't anymore, Jordan.

That's it.

This is the last it's the last episode.

I can't do it anymore.

Okay?

Scott Benner (23:36)

It's all so simple.

The one that ended the podcast.

No, Jordan.

It's everybody together.

It just it came together cumulatively, and this is where it exploded.

Scott Benner (23:46)

I just can't alright.

Alright.

Fine.

I'll stop.

Let me relax.

Scott Benner (23:49)

Hold on a second.

Let's put an ad here.

Jordon (23:52)

Let's do it.

Yeah.

Okay.

What do you

Scott Benner (23:54)

think it'll be?

US med?

Omnipod?

Who knows?

Jordon (23:56)

We'll find out.

Scott Benner (23:57)

We'll find out in a second.

Okay.

Go ahead.

I'm sorry.

Continue on.

Scott Benner (24:00)

I'm gonna stop.

But I get no.

No.

I felt like I pulled a soapbox out.

I didn't mean to do that.

Scott Benner (24:04)

Go ahead.

Jordon (24:04)

Not at all.

So got yeah.

A one c came back, and it was ridiculous.

And so I just had to wait because the doctor was out for the day.

It was, you know, after 05:00 at that point, she'd gone home.

Jordon (24:17)

Mhmm.

So I I wasn't expecting it, but I I got a call at, like, 09:00 in the morning, and she was like, are you okay?

Like

Scott Benner (24:27)

The are you okay call?

Jordon (24:28)

Yeah.

Are you feeling okay?

Because it looks like you have diabetes.

And she asked she then asked me all of the, like, have you been eating a lot more sugar in the last three months?

Have you been well and I was like, yes.

Jordon (24:44)

I don't know.

Because at that point, I'm like Yeah.

My god.

I gave myself diabetes because I have

Scott Benner (24:49)

so that Santa Claus'?

Jordon (24:51)

Exactly.

Scott Benner (24:52)

Yeah.

Jordon (24:53)

So I said yes even though it wasn't really true.

I mean, I I eat really well.

Mhmm.

I asked her, like, what type is this?

And she was like, I I have no clue.

Jordon (25:05)

We're gonna do some more testing.

And see this, I've listened to, you know, a million episodes of the podcast and have heard about how people's doctors have treated them, you know, especially, like, young adults being diagnosed and initially misdiagnosed.

Scott Benner (25:24)

Yeah.

Jordon (25:24)

But that man, this woman, she put in the GAD, 65 Right away.

Immediately.

Scott Benner (25:30)

Good for you.

Jordon (25:31)

So I I went in that after that phone call the next morning, got another blood draw in my, I think I was at, like, two seventy five fasting.

Mhmm.

And I had probably been not eating, you know, ever since seeing those numbers, and so two seventy five was high.

Scott Benner (25:50)

Two questions.

How did you know to ask what type it was?

Jordon (25:53)

Because something just didn't seem right.

I mean, I, you know, I went to to school for nutrition science.

You know?

I took anatomy, physio blah blah blah.

And I was just kinda like, I'm 25 years old.

Jordon (26:08)

I am at a normal weight.

I eat pretty well, and I'm I'm ridiculously active.

So, like It would be

Scott Benner (26:15)

odd if I had type two diabetes.

Yeah.

Okay.

Jordon (26:17)

Yeah.

Even even though I'm not perfect with my diet.

Scott Benner (26:21)

Mhmm.

Okay.

Jordon (26:22)

I have two friends with type one.

Scott Benner (26:26)

Oh, okay.

Jordon (26:27)

So I was Well, that's helpful.

I I I'm I'm aware of type one even though I I I didn't know too much

Scott Benner (26:32)

about it.

You all don't live on the same street next to a toxic waste dump or something like that, do you?

Jordon (26:37)

Hey.

We live pretty damn close, so there might be something there.

Scott Benner (26:40)

No kidding.

Okay.

Keep going.

Jordon (26:42)

Yeah.

So she she told me we would do some testing, and the GAD it came back.

I think the reference value was, like, normal is less than five international units or something, and mine was, like, 15.

So I was like, oh, so that's positive.

They said it's kind of, like, on the low end of positive, but still.

Jordon (27:04)

You know?

Scott Benner (27:05)

Mhmm.

Jordon (27:06)

And then they tested c peptide, which was also, like, just under normal, the low end of normal, and that was after eating.

And then they did the zinc transporter antibody.

Yep.

And that one was also positive, but on the low end.

So I that kind of all made sense with the fact that I was not in DKA yet.

Scott Benner (27:29)

Yeah.

The slower the slower diagnosis that was happening to you.

Jordon (27:33)

Yes.

Yeah.

Let me just say again, I I wanna give a lot of credit too, but this was my primary care.

Scott Benner (27:40)

Wow.

Wow.

Jordon (27:41)

Yeah.

Young lady, which I think had a lot to do with it, she just put all that in right away, got me on insulin right away.

Scott Benner (27:49)

You think because she was young, she's motivated to do a good job.

She's still interested in in her work, that kind of thing.

Is that what you're saying?

Jordon (27:55)

Correct.

Yeah.

Because she left, actually, I was very upset because I got an email saying that she was no longer with Kaiser.

And I don't know if it doesn't matter if I say that out loud.

But No.

Jordon (28:08)

Anyway so I had to choose a new one, and I chose an older man who we talked about the fact that it was type one.

Yes.

Antibody positive.

But I looked back at the clinical notes after my appointment, and I was so pissed off because he had written down that I needed here I am sitting in his office, a hundred and thirty pounds.

I'm, like, five nine.

Jordon (28:32)

And he writes down that I need exercise counseling and diet counseling.

And, like, he's he's talking to me as if, oh, yeah.

I bet you're doing all that exercise to try to, you know, like, lower your blood sugar and keep your weight in check.

And I was like, not really.

I I lost 40 pounds without trying.

Scott Benner (28:55)

Yeah.

Yeah.

One thirty on a five nine frame.

You must have looked like a 12 year old girl.

Jordon (29:00)

Oh my god.

Yeah.

Yeah.

Yeah.

So this was one one of the things that really made me upset, concerned before I made the doctor's appointment was I went to a baseball game with my friends, and we took a group picture.

Jordon (29:15)

And I was on, like, the side, so I had to, like, lean in.

And my neck, ugh, it looked so gross.

It was, like, so skinny and long, and my face, my cheekbones were sunken in.

Scott Benner (29:29)

I'm five nine, Jordan.

And the last time I weighed myself, I was one seventy six, and I look thin.

Like like Yeah.

Jordon (29:38)

Yeah.

You know what I pictures of you since you've, since you've lost weight.

And I'm like, wow.

That guy's that guy's thin.

Scott Benner (29:43)

Photograph well.

But, like, I'm telling you in person, like, I I look like, I look thinner.

Like and I can't imagine.

If you took 40 more pounds off of me, I'm trying to imagine what that would be like.

Jordon (29:54)

Yeah.

I go to this brewery with my friends.

We play, like, trivia and stuff there, and they have these terribly uncomfortable wooden chairs.

Scott Benner (30:04)

Oh, yeah.

Jordon (30:04)

And I started to have to get up, like, every few minutes to, quote, go to the bathroom.

But, well, I was doing that because I was peeing all the time.

Scott Benner (30:15)

But your butt hurt.

Jordon (30:16)

Yeah.

My Yeah.

Hurt.

And I could see my hip bones.

I could see my my shoulder points were just yeah.

Scott Benner (30:25)

Yeah.

Yeah.

I have trouble on a plane.

Some of the airline seats are really uncomfortable now because I my ass is gone.

Like, it just yeah.

Scott Benner (30:33)

I'm not even kidding.

Jordon (30:34)

Cushion.

Scott Benner (30:34)

Yeah.

They're they're they're yeah.

No kidding.

Yeah.

Like so it it's no joke.

Scott Benner (30:39)

Your bones are pushing on your skin.

Yep.

Yep.

Oh, Jesus.

Jordon (30:43)

And

Scott Benner (30:44)

Look at you.

Jordon (30:44)

And that yeah.

I know.

But, you know, the funny thing that I just I gotta be honest.

I gotta mention it.

I got out of the shower one day and was like, damn, dude.

Jordon (30:56)

Like, you have been doing a great job, you know, killing it in the gym.

Scott Benner (31:01)

Yeah.

I am ripped.

Look at me.

Jordon (31:04)

So at the on the one hand, you know, cancerous lesions in my mouth and vom all that stuff.

Scott Benner (31:10)

But look how thin I am.

Yeah.

Jesus.

Yeah.

Usually the way, a number of people have said that to me over the years.

Scott Benner (31:17)

It's usually women.

I just want you to know.

But, like, it's, today, it's you.

I like that.

I'm like, you're like, oh, look at me.

Jordon (31:22)

Well, I I've always been healthy, but always had a my it's funny.

My grandfather always said I had baby fat, and that always pissed me off.

Yeah.

So I was like, damn.

I'm finally, it took me until 25, but I lost my baby fat.

Family Health History and Autoimmune Links

Scott Benner (31:37)

Is he is he still alive?

Did you go show it off to him?

Jordon (31:40)

He is still alive.

And, you know, I this, kinda off topic off topic, but he was one person I thought that I would really be able to talk to about the diabetes, but he didn't even understand.

Scott Benner (31:53)

Why'd you think you'd be able to talk to him about it?

Jordon (31:55)

I don't know considering he was making, you know, asinine comments about my weight and body composition when I was a child.

But

Scott Benner (32:05)

Great generation.

The greatest generation.

You know what I mean?

Jordon (32:08)

Yeah.

Seriously.

He's a a guy who fancies himself to be wise.

I can I'm trying to put it as nicely as I

Scott Benner (32:16)

can.

So when you were younger, you were like, I think this guy knows something.

He tells me he knows something.

Then you went to him, you're like, you don't know anything about this.

Jordon (32:23)

Correct.

Scott Benner (32:23)

Yeah.

Yeah.

He's what they call, foolish.

Jordon (32:26)

Yep.

Yeah.

Some might say.

Yeah.

Scott Benner (32:30)

That's awesome.

Your dad's mom or your mom's mom?

Jordon (32:33)

My dad's mom.

Scott Benner (32:34)

That's okay.

Okay.

Is your dad the same way, is your dad like

Jordon (32:37)

Sorry.

My dad's dad.

Scott Benner (32:38)

Your dad's dad?

Sorry.

Yeah.

And that was me.

I led you wrong there.

Scott Benner (32:41)

Is your father similar, or did he go different path from your grandfather?

Jordon (32:45)

Actually, he took a a worse path.

So my dad my dad has early onset Alzheimer's.

Oh, god.

Sorry.

Been, yeah.

Jordon (32:54)

Thank you.

That's he was diagnosed about three years ago, but the whole process has been probably about a decade long.

Scott Benner (33:01)

No kidding.

How old is he now?

Jordon (33:03)

He is 50 about to turn 57.

Scott Benner (33:08)

Oh, that's harsh.

I'm sorry.

Jordon (33:10)

Yeah.

But, no, my dad was not anymore

Scott Benner (33:14)

Learned in his time?

Jordon (33:15)

No.

Correct.

Scott Benner (33:18)

Jordan's like, listen.

We're on our own.

Okay?

Jordon (33:20)

Yeah.

I can't You know, going back to it, that's another reason I I, like, I have tried to take care of stuff myself is because I'm just like, I I can't.

Scott Benner (33:31)

Do you think that's because don't you think everybody feels like that about their parents to some degree?

Jordon (33:36)

Probably.

But I also know a lot of people whose parents like, I I mean, I listened to you talking about how you still you know, if if Arden needs help, you know, you're there to help.

Not that you're there all the time or your son, But it's just I don't know.

I guess everyone's a little different.

Scott Benner (33:54)

But, you know, they don't see it that way.

Right?

That you listen to me and you think if my father had half on the ball, this guy does, I'd be better off.

But my kids think I'm an idiot too.

Sure.

Jordon (34:05)

Yeah.

Yeah.

Yeah.

But that's that's because they grew up with you.

That way, they're not used to it being the I I wonder if they would feel differently now that they've, like, been to college, been out of house.

Jordon (34:15)

I mean, I'm sure they

Scott Benner (34:17)

feel surprised.

Yeah.

Well, listen.

I'm sure at some point, but I think it's part of the the natural, like, separation process.

The at some point, you have to feel like because I'm gonna go make my way in the world, and I know things.

Scott Benner (34:27)

And if you if you keep thinking, like, well, they're smarter than me.

I'll just sit here.

It's what's it?

Infanalyzing?

Is that the word?

Scott Benner (34:34)

I think it's a natural part of, like, leaving the nest to think that the the nest you're leaving is not as good of a situation as you could create for yourself.

Jordon (34:42)

Sure.

I there is there's some truth to that because I I you know, parents always say, like, I want you to have a better life than I did, and I think that to some extent, that's that's usually the case.

Right?

Scott Benner (34:54)

Like Yeah.

I mean, I tell my kids, good luck creating this life as good as I've created for you.

I don't think have to get out there and work your ass off because I've been working nineteen hours a day my whole life, so good luck.

Jordon (35:04)

Right.

Scott Benner (35:04)

Yeah.

Jordon (35:04)

Yeah.

Yeah.

Yeah.

I that's one thing that actually my mom my mom is super supportive, and, I mean, I've I've learned pretty much everything from her.

Scott Benner (35:16)

That's awesome.

Jordon (35:17)

She definitely supports me in that kind of, like, go out there and and try to try to do better, you know, where you can.

And I I think it's a lot more pertaining to, like, emotions and, like, just well-being.

Not, like, go out there and figure out how your career is gonna blah blah blah, this and that.

Mhmm.

It's generally more like how can you create, like, a fulfilling life for yourself, take care of yourself.

Scott Benner (35:45)

Well, that's

Jordon (35:46)

that's thoughtful.

Scott Benner (35:47)

I bet you her perspective is probably growing significantly since your dad's issues too.

Jordon (35:53)

Absolutely.

Because, I mean, I'll be blunt.

He's not an easy man and never has been to be around.

Scott Benner (36:03)

And now it's harder.

Jordon (36:03)

It's worse now.

Scott Benner (36:06)

Yeah.

Yeah.

Jordon (36:07)

It's funny because my mom's told me some people say that, like, their, you know, their parent or grandparent, whatever, was a nightmare, and then the disease hit, they became so sweet and blah blah blah.

And I'm just like

Scott Benner (36:20)

He doubled down.

For you.

Yeah.

My dad doubled down when he got it.

That's terrible.

Scott Benner (36:26)

Jeez.

That's horrible.

Yeah.

Ugh.

Well, hey.

Scott Benner (36:29)

Are there other autoimmune issues in your family?

Jordon (36:31)

See, I knew this was coming, and I was really excited for

Scott Benner (36:33)

it.

Go ahead.

Jordon (36:35)

My mom's brother has RA and hypothyroidism.

Scott Benner (36:40)

Mhmm.

Jordon (36:41)

And their uncle my mom's uncle passed away from MS.

They had another uncle who had diabetes that was so severe, he lost now this was supposedly type two, but I have some speculation about it.

He lost both feet and died at, like, you know, way too early.

And since my diagnosis, my mom had lunch with a cousin, and her cousin was like, oh, yeah.

I have Crohn's, and my daughter has type one.

Jordon (37:14)

So I was like, oh, okay.

So this goes like

Scott Benner (37:17)

Yeah.

It's a lot.

Have you considered getting the hell out of Maryland?

What's going on?

Jordon (37:20)

Seriously.

Oh, yes.

Absolutely.

Scott Benner (37:22)

Could be the marshes.

There are marshes there

Jordon (37:24)

on here.

Yeah.

Yeah.

Yeah.

The nasty soggy air.

Scott Benner (37:28)

And what is your what's your dad's diagnosis?

Jordon (37:31)

Early onset Alzheimer's.

Scott Benner (37:33)

Just that.

That's it.

Okay.

Jordon (37:35)

Yeah.

So no autoimmune from that side of the family.

A lot of type two, but, of course, everyone these days has type two diabetes.

So

Scott Benner (37:44)

It's just the thing to do.

Do you think you you well, that's in your do you think you know, there are plenty of people who would listen to this and go, I don't know one person has type two diabetes, I think.

Jordon (37:53)

You think?

Yeah.

Yeah.

Yeah.

Yeah.

Jordon (37:54)

I've always been, maybe it's a cultural thing.

My dad is black, and we come from, like, a, I would say, a southern family.

Mhmm.

So, you know, all of those kind of comorbidities, I guess, as they say.

You know, it got the high blood pressure, high cholesterol, all that kind of stuff.

Jordon (38:17)

So type two is I mean, it wouldn't make sense to not have it.

Scott Benner (38:23)

Yeah.

No.

I was talking to a a guy in his, like, late thirties yesterday.

He's of Spanish descent.

He was talking about how much type type two is in his family.

Scott Benner (38:31)

Yeah.

Yeah.

It's Yeah.

It's something I I did a little, just a a quick Google here.

Alzheimer's not classified as an autoimmune disease.

Scott Benner (38:40)

It is generally considered a neurodegenerative disease marked by brain changes such as beta amyloid plaques and Mhmm.

Tau tangles.

What is true is that immune systems seem to play a role in Alzheimer's.

The National Institute on Aging notes that inflammation and immune system problems have been linked to development of Alzheimer's and related dementias, and newer research is looking closely at immune dysfunction in the disease.

So, you know, there's a connection just you know, Alzheimer's isn't considered an autoimmune issue.

Jordon (39:13)

Right.

I mean, I think you you mentioned it a lot, systemic inflammation.

Scott Benner (39:18)

Just the bad news.

Jordon (39:19)

I mean, it may not something may not be autoimmune in nature, but you know?

Scott Benner (39:25)

I can't take obviously, you can't take Advil every day, okay, as an example.

But there are days if I take it, I just do feel better a little bit.

And Sure.

Like, I and I I just do wonder if I don't have, like, inflammation related issues that I maybe aren't autoimmune specifically, but you take that with me and my wife having, you know, thyroid and you mix it together and you get Arden.

You know?

Scott Benner (39:50)

Yeah.

Jordon (39:50)

There you go.

She was doomed from a

Scott Benner (39:52)

Doomed from the start.

Jordon (39:54)

Doomed from the start.

That's what I think sometimes.

Like, did you two not, like, look at each other's breeding papers before

Scott Benner (40:01)

you know?

Your mom and your dad?

Jordon (40:02)

Yes.

I'll tell

Scott Benner (40:03)

you right now.

If they were puppies, no one would have put them together.

Jordon (40:07)

Seriously.

Seriously.

But I I think a lot of that has also come to light later.

You know, my uncle is twelve years younger than my mom.

So I think I don't remember him having those issues when I was younger.

Jordon (40:21)

Maybe he did.

Scott Benner (40:22)

Mhmm.

Jordon (40:23)

All but I know that it's kicking his ass now.

Uh-huh.

Like

Scott Benner (40:27)

Yeah.

I'm sorry.

It's a lot of health issues.

It's it it overwhelms a overwhelms a family and a life.

You know?

Jordon (40:34)

Yeah.

But, you know, he's if you saw my uncle, this guy's, like, the healthiest looking person, positive.

He's a gym teacher.

Scott Benner (40:42)

Yeah.

Jordon (40:42)

You know?

Scott Benner (40:43)

Do you think about that?

Do you think about maybe I'll just put a stop to it and not have kids?

Jordon (40:47)

Oh, yeah.

Scott Benner (40:48)

You do think about

Jordon (40:49)

I have no plans to have kids because I've just well, like, not just the diabetes, but, like, mental health, all of it.

Scott Benner (41:00)

What about the mental health part?

Jordon (41:02)

I don't wanna have to have my own children that see me in that state or I mean, my my dad's parents are alive.

Scott Benner (41:12)

Mhmm.

Wait.

What about your mental health?

Don't I understand?

Jordon (41:16)

Oh, mental health, sorry, just meaning, like, the Alzheimer's and stuff

Scott Benner (41:20)

like kind of stuff.

Okay.

Jordon (41:21)

Like, that stuff does it does seem to run-in the family.

He's the first, I think, with early onset.

You know?

Everyone else has been old.

Scott Benner (41:30)

This is also something you're worried about for yourself then?

Jordon (41:33)

Yeah.

Not like I'm not going crazy about it.

Scott Benner (41:36)

Good.

Jordon (41:38)

I you know, you take care of yourself.

You do what you can.

You know, there's a lot of information out there.

See, I've changed my tune now.

I'm like, let's let's not play around.

The Honeymoon Phase and Insulin Adjustments

Scott Benner (41:49)

Two years later, Jordan's a different person.

Yeah.

You you wake up five hours late.

You're calling 911.

You're like, something's wrong with me.

Scott Benner (41:56)

Come yeah.

Get over here right now.

Jordon (41:58)

I need a helicopter.

Yeah.

Scott Benner (42:00)

Matter of fact, out of here.

Jordon (42:03)

Yeah.

Yeah.

So I I have kind of taken some of the lifestyle changes to heart that, you know, may lead to me a healthier life in preventing those issues.

But but to, what you were saying about kids, I don't I wouldn't want them to have to take care of me.

I wouldn't and I was saying, like, my dad's parents are alive, and it is really tough for them.

Jordon (42:28)

Like, I I that would kinda break my heart too.

And Yeah.

And on top of that, I don't I haven't even we haven't gotten there yet, but I haven't progressed to full on type one yet.

You know?

I'm honeymooning.

Scott Benner (42:41)

Oh, you are still in

Jordon (42:42)

the honeymoon.

So, I can only imagine, like, having to deal with myself and someone else's diabetes.

Scott Benner (42:49)

Jordan, you're having a very, very slow onset then.

Jordon (42:52)

I am.

Scott Benner (42:53)

Yeah.

How long has it been going?

A couple years, almost a year and a half?

Jordon (42:57)

So I was diagnosed in June, so it's been ten months.

Scott Benner (43:00)

I would also Just about.

I would also argue the six months prior to that.

Oh, yeah.

Yeah.

Yeah.

Scott Benner (43:05)

Yeah.

Basically.

Six months prior to that.

Yeah.

Some something's going on there too, obviously.

Scott Benner (43:08)

Oh, so what's it look like?

Are you are you using a pump?

Are you MDI?

What are you doing?

Jordon (43:14)

I just do one shot.

They started me on basal immediately.

It was, like, seven units.

Scott Benner (43:21)

Oh, okay.

Jordon (43:22)

And so I went from I was testing, the like, all the time initially, and I was I went from, like, 3 hundreds to 100 to in the nineties, like, in two days.

Scott Benner (43:41)

Mhmm.

Just with seven units of basil a day?

Jordon (43:44)

Yeah.

Scott Benner (43:45)

Okay.

Jordon (43:45)

So that it'd be and I was still confused about, like, type one, type two, but, like, from what I understand, that's it's it's a characteristic of maybe even though it went on for a long time, we kinda caught it early.

I have some some remaining beta cell function there.

Scott Benner (44:04)

You have you have lot Lotta probably.

Is that what they're calling it?

Jordon (44:07)

Lot.

Yeah.

Scott Benner (44:08)

Yeah.

Jordon (44:08)

And I I asked my endo about that, and she was like, I don't care what you call it.

Just just you know?

Scott Benner (44:15)

You have type one on a train that's taken forever to get in the station.

And yeah.

Yeah.

Did they mention GLP, like, low level GLP to help?

Jordon (44:24)

She was convinced that I would disappear if I started on a GLP and lost any weight, even if it was a microdose, I guess.

Scott Benner (44:34)

Okay.

Jordon (44:35)

I don't know.

But I I asked about, god, can I say it correctly, teplizumab or whatever it is?

Scott Benner (44:42)

Yeah.

Yeah.

Yeah.

TZL.

Jordon (44:43)

The yeah.

Mhmm.

The the drugs that prolong the honeymoon, and she was just I don't know.

Maybe it was the the a one c of fourteen point five that she was just kinda like, I think you're maybe a little a little too far gone.

Scott Benner (44:57)

She's like, the train is going slow, but it's pretty far out of the station.

Jordon (45:01)

It's here.

Yeah.

Yeah.

Gotcha.

So she said just continue with that.

Jordon (45:05)

And and so I was actually having a lot of lows because I exercise like crazy as well.

Yeah.

So I was just always always low.

And back in February, couple months wait.

Yeah.

Jordon (45:22)

Basically, last month, I was like, I can't keep doing this.

I'm at, like I just had food.

I shouldn't be at 55 and, you know, arrow down.

Scott Benner (45:32)

So on days when you're exercising hard, even though seven units of basal are too much?

Jordon (45:37)

Yes.

Scott Benner (45:38)

Yeah.

It's interesting.

Jordon (45:42)

Yeah.

It's confusing to me.

Scott Benner (45:44)

I would be so I have to tell you, not a doctor, not advice.

I would be super interested to see what micro dosing GLPs did for you.

Yeah.

2.5 is the smallest pen I'm talking about, way less than that.

And, like Yeah.

Scott Benner (45:55)

Just to see what what like, if if there's a if there's a tipping point in there where it could affect your blood sugar without affecting your hunger.

Jordon (46:03)

I would like to see that too because I I don't know.

It just doesn't I tried to stop taking insulin, which I I know you're not supposed to do, but I was really desperate here because I was I was getting scared.

Scott Benner (46:13)

Because of how low you were getting?

Jordon (46:15)

Yeah.

Like, it was every day at the same time, 55 double arrow down.

Like and I didn't believe it.

I was like, I need to finger prick because

Scott Benner (46:24)

And sure enough.

Jordon (46:25)

This is probably wrong, and I was in the forties every time.

Scott Benner (46:29)

Yeah.

You probably have the basal running, and all of a sudden, your pancreas is like, hey.

I can help now.

Jordon (46:35)

Yeah.

I'm here too.

I'm still going.

Yeah.

Yeah.

Jordon (46:37)

Which also I my c peptide rebounded after three months.

Scott Benner (46:43)

Interesting.

Jordon (46:43)

It went from being low to being normal.

They they said that's yeah.

You're honeymooning, and I was like, okay.

So I stopped taking the insulin.

Yeah.

Jordon (46:54)

It was February because I went to a Super Bowl party, and I had fun eating, let's just say.

And I I left the party at, like, my blood sugar was at, like, two seventy five.

And I was like, oh, yeah.

That's that's pretty high, but, you know, the basal always kicks in.

And whatever beta cell function I have left kicks in usually and brings me back down.

Jordon (47:20)

And then I woke up the next morning, and I was still at two seventy five.

Scott Benner (47:24)

Oh, and that did not work.

You didn't get that one.

Maybe it was because the Super Bowl sucked that your body didn't wanna help.

Jordon (47:30)

Right.

It was just so upset.

Yeah.

Yeah.

But, yeah, I was like, okay.

Scott Benner (47:35)

Not like that beautiful Super Bowl that my Eagles put on the year before.

Jordon (47:38)

That's right.

Scott Benner (47:40)

Where they trounced the Chiefs and made everybody in the country happy except for Kansas City.

Jordon (47:44)

See, I am not an Eagles fan, but I'm with you on that one.

Scott Benner (47:48)

It's okay.

Jordon (47:48)

I enjoyed that game.

Scott Benner (47:49)

I understand how you feel.

Jordon (47:50)

Was a great game.

Scott Benner (47:51)

I understand how you people feel down there.

I know what's going on.

Don't worry.

Jordon (47:54)

Hate the Chiefs even more.

So

Scott Benner (47:55)

Everyone does.

And it's it's Yeah.

It's because of what's his name.

Jordon (48:00)

Oh, yeah.

What's his name is just yeah.

Yeah.

We gotta get him off, all the commercials.

Scott Benner (48:04)

I've never seen such a good quarterback get hurt and everybody go, okay.

I'm alright with it.

Yeah.

Yeah.

It It's his time.

Scott Benner (48:10)

He's he's done he's done a thing.

He's he's made people not like him somehow.

It's interesting.

Jordon (48:15)

Yeah.

Yeah.

For sure.

Scott Benner (48:16)

Yeah.

Talented guy.

But nevertheless yeah.

Yeah.

It's the crybaby stuff, don't you think?

Jordon (48:22)

It is.

That's and people don't wanna hear that after you've gotten everything you could ask.

Scott Benner (48:28)

One yeah.

One did did you see in those, the betting scandals, especially around basketball?

They're talking to the referees that have been involved in it, And a lot of them are saying, like, look.

Nobody directly comes and tells you we want the Lakers to win, for example.

You know, we want we want we want this team to win.

Scott Benner (48:46)

We want that team to win.

But he's he's like, you understand what's good for the league, and you make those calls, and then the league assigns you to more games.

He's like, so nobody ever asks, but it kinda gets done like that.

Yeah.

And I'm telling you that that, the year before, like, like, three Super Bowls ago, I think, one, three Super Bowls ago, you watch that AFC championship game.

Scott Benner (49:11)

It feels like the ref is like, I am gonna throw this flag until the Chiefs win.

And Yeah.

Like, and it was really does.

It really does.

I mean, from an outside perspective, I I not I I had no skin in the game.

Scott Benner (49:22)

Like, I'm just watching it.

I'm like, man, it just feels like that guy's like, look.

If I gotta throw this flag on the ground one more time to make sure the Chiefs go to the Super Bowl, then that's what I'm gonna do.

Damn it.

Jordon (49:31)

I'm doing it.

Scott Benner (49:31)

Because Taylor Swift's boyfriend has gotta be successful.

And That's right.

Jordon (49:35)

Yeah.

Maybe everyone's just like, hey.

My daughters are really big Taylor Swift fans.

Scott Benner (49:41)

Yeah.

Yeah.

I would love to see him.

You know, right at the Chiefs making the Super Bowl, Taylor Swift will come.

I'll bring my daughter.

Scott Benner (49:46)

It'll be a whole and I don't think it's maybe conscious or not.

Like, I'm just saying, trust no one.

And

Jordon (49:52)

No.

Yeah.

I'm a huge conspiracy theorist, Scott.

Scott Benner (49:54)

I'm not at all.

I don't think that's a conspiracy.

I don't think that's a conspiracy to think that, like

Jordon (50:00)

It's just right in front of our faces.

Scott Benner (50:01)

So feel like you understand what is expected.

You have sway over it.

You make sway.

People then like you.

You get more things.

Scott Benner (50:10)

Like, I you know, it just feels like feels like that's kinda how the brain works.

There's a a pleasure center you're you're feeding a little bit.

Do you wear CGM?

Jordon (50:19)

I do.

So that's another thing.

Praise Kaiser or praise this doctor.

You know how they use the language that the medical language that no one understands, and it they don't mean anything by it, but everyone was like, Humalog, Basal, CG, and I'm just like, yeah.

Scott Benner (50:34)

Right.

Jordon (50:35)

Whatever.

Fine.

And so after finger sticking, like, 50 times a day for a week, I talked to my this was when the, the GAD results came back, and she was like, yeah.

It looks like you have type one.

And she was like, have you gotten the CGM yet?

Jordon (50:53)

And I was like, you mean the finger stick thing?

Like, yeah.

I have that.

I'm testing.

And she was like, no.

Jordon (50:59)

A CGM, it, you know, goes on your arm and stay and I was like, oh, that that might be nice to have.

So I don't know.

Yeah.

This was weird because I got diagnosed over the phone, went to the pharmacy, picked up my you know, it wasn't a whole thing.

So a lot got lost in a lot of information got lost on its way to me, I guess.

Jordon (51:21)

And, but, she got me on the g seven, the Dexcom g seven right away.

Podcast Impact and Final Thoughts

Scott Benner (51:28)

Because you brought this up, may I just plug the website for a second?

Juiceboxpodcast.com/interactive-dd.

It's also in the menu.

You can just click on the menu at the top right.

It's interactive defining diabetes.

Scott Benner (51:42)

It's, like, all the episodes from defining diabetes, but, like, broken down, like, just very simply.

Jordon (51:49)

Uh-huh.

Okay.

Scott Benner (51:50)

English, Spanish, French, German, Hindi, a bunch of different languages if you wanna go look at it that way.

So, basically, like, I'm looking top left a one c, your ninety day big picture report card, though it doesn't show the daily roller coaster of highs and lows.

You click on it.

It says a blood test measuring average blood glucose levels over the past two to three months via glycated hemoglobin.

And then you can if you want to click off of it or click listen to episode, it'll take you to the defining diabetes episode that defines a one c.

Jordon (52:21)

And Oh, crap.

Scott Benner (52:22)

Uh-huh.

And at the top, there's a little button that says challenge.

And if you click on challenge and then you hit start, it starts asking you questions.

An early morning increase in blood glucose caused by natural counterregulatory hormones.

Dawn phenomenon, algorithm, c peptide.

Scott Benner (52:37)

I say Dawn phenomenon.

Yes.

And then it goes to next one, and there's this little bar that runs down.

I think it takes, like, ten seconds.

It gives you time to answer to get to the next one.

Scott Benner (52:44)

So you can play, like, a quiz to learn the the definitions around diabetes.

Jordon (52:49)

Wow.

Scott, you're a digital creator if I've ever seen one.

Scott Benner (52:52)

I am on it.

You should see.

I just basically I just basically sit here now recording the podcast and working on the website, trying to turn the website into this great thing, which I think it is.

But now I'm about to start starting now to try to get the word out about it, and I'm gonna start with you.

So interactive dash d d if you wanna take the defining diabetes challenge or check out some terms that you might not know the definitions to.

Scott Benner (53:16)

Thanks.

Jordon (53:16)

That's perfect.

Scott Benner (53:17)

Look at me.

Jordon (53:18)

Yeah.

I I I used my own craziness to kinda learn everything I could.

Scott Benner (53:25)

You know, I tell this story constantly, but, like, the first time somebody on the podcast said, like, I don't I somebody said basil to me, I didn't know what the hell that was.

Like, you know, like, I didn't even know I was using basil insulin, but I was apparently.

And and Yeah.

If you don't have context for these words, it all be it's more difficult.

Jordon (53:42)

So I kept hearing the word bolus, and I was like, you mean, like, a bolus of food that, like, you swab,

Scott Benner (53:49)

Bolus you is my bolus dirty?

No.

No.

No, honey.

It's in the sink.

Scott Benner (53:56)

We already cleaned it.

Yeah.

Yeah.

Yeah.

Yeah.

Scott Benner (53:58)

I you people run out all the time.

I'm hungry all the time.

It's like I got diabetes.

I'm hungry all the time.

Hungry all the time.

Scott Benner (54:03)

Go figure out what amylin is.

There you go.

Like, they now now you have more context.

You can build bigger stories for yourself and and maybe change your pathway and understanding and get yourself to something better.

I don't wanna sound like a

Jordon (54:16)

That said, I had, no clue that, I think you and Jenny were talking about it that, like, the diabetes effect on your pancreas also extends to, like, hunger hormones and signaling.

And was like, oh my god.

That makes

Scott Benner (54:29)

so sense.

Yeah.

Because you are a you're a hungry little monkey sometimes, aren't you?

Jordon (54:34)

Oh, yeah, man.

I'm I'm thinking about food all day long.

My god.

Let's call

Scott Benner (54:39)

your episode hungry little monkey.

Can we do that?

No.

I don't I don't know.

We'll figure it out.

Scott Benner (54:43)

I I what the other one was good too.

What was the other title I said?

Jordon (54:48)

Oh, shoot.

Something about lungs.

Scott Benner (54:51)

Oh, no.

That's because I know your last name and no one else knows it.

And we're not gonna share we we're not gonna share your last name, so I can't use it.

Because it what do it's it's on it literally is without context.

So I'll figure something

Jordon (55:05)

out.

Yeah.

Scott Benner (55:05)

Don't you worry.

Yeah.

Everything's gonna be fun.

Jordon (55:07)

Yeah.

Yeah.

Yeah.

I gotta find some more interesting stuff

Scott Benner (55:11)

to talk about.

What what else what what made you wanna come on the podcast?

Jordon (55:15)

The shock and the very sudden, change in my lifestyle that was forced upon me.

Just kinda I was like, I have to like, I can't be the only one, so I gotta find somebody.

And I I found the podcast because my mom was like, I'm sure you could find a podcast that yeah.

So I looked up type one diabetes, and the first episode I found was the the dirty toilet bowl.

I don't know if you remember that one, but the the guy was, like, 25 and diagnosed around the same age.

Jordon (55:54)

And, like, seemed like he noticed a lot of the same signs.

And I was like, I don't know.

As time has gone on, I have kept, like, putting pieces of the puzzle together, listening to the podcast, and, you know, that's helping me piece things together even more.

So I I really wanted to just kinda come on and and

Scott Benner (56:15)

tell myself.

Glad you did.

And you're talking about

Jordon (56:17)

Yeah.

Scott Benner (56:17)

He had an there was an overgrowth in his toilet bowl because of all the sugar he was dumping.

Yes.

Jordon (56:23)

Yes.

And I actually had a friend see, we have, this mutual friend who has type one, and they've known each other since they were, like, really little.

And I think because she mentioned the black ring in the toilet bowl to me.

I was like, you know, whatever.

I sorry.

Jordon (56:43)

I didn't clean the bathroom.

You know?

Now hindsight, she was like, yeah.

I was actually wondering, like, if someone in the house had diabetes because I know that.

And I was like,

Scott Benner (56:53)

goddamn.

I never heard Yeah.

Jordon (56:58)

But, yeah, just funny stuff like that that I heard when I first started listening to the podcast, and I was like, no way There's someone who had the same thing that I thought was so bizarre happened to them.

Yeah.

Yeah.

Scott Benner (57:13)

It happens to people all the time.

So and and and where else are you gonna hear about that?

No one's gonna tell you about that.

That's not a not that's not a thing you're gonna read in a book or even

Jordon (57:23)

No.

We don't sit around the dinner table talking about our our

Scott Benner (57:26)

Have you all noticed the black ring in the toilet bowl?

Seems like it seems like something's growing in there, doesn't it?

It's something you guys okay?

Everybody alright?

Jordon (57:33)

I was, you know, having doing my own little science experiment.

That's

Scott Benner (57:38)

can I tell you something I was thinking about the other day?

I think this kind of I think it'll dovetail nicely into this.

So while you were talking earlier, I watched a, this is gonna here's a lot of words nobody's gonna care about.

Tacodermis smaradensis.

It's a small Japanese grass lizard with a long tail.

Scott Benner (57:54)

I have a a a I have a colony of them living in a tank over here.

And, one of them was trying to get up on this big leaf, like, running but slipping.

It looked like it was on a treadmill for a while.

It was absolutely absolutely delightful.

This is not why I bring them up.

Scott Benner (58:12)

But I I was looking at them the other day, and there's females in there, and they're gonna start laying eggs pretty soon.

And lizards are pretty simple animals.

Right?

Like, they need calcium.

And for some reason in captivity, they cannot get calcium the way they live in captivity, the way they get it out in the world.

Scott Benner (58:29)

So when you give them food Yeah.

You dust their food with just calcium.

Dust.

Right?

Yeah.

Scott Benner (58:34)

And if you don't do that Yeah.

They don't die right away.

They don't die in a week or a month or, like but their bodies slowly are lacking the nutrients, the building blocks, the necessities to keep them healthy.

And then if the females lay eggs, that uses up most of their calcium stores to create the eggs, and then they'll sometimes pass after that if they don't have enough calcium.

Or they can get bone, like, something called metabolic bone disease.

Scott Benner (59:00)

Like, there's all these things that can happen that will lead to their death, and it's just about calcium.

Removing yourself from the the I can't believe I said it correctly.

Tacidermis smaradens.

I I never can say it out loud, I got it right this time.

Thank you.

Scott Benner (59:15)

We putting them aside, like, there are so many little ingredients inside of you that you need to be healthy.

And you can take some of them away and not die, but it doesn't mean you're optimal.

And, you know, the Right.

Jordon (59:33)

And you might not notice it for a long time.

Scott Benner (59:35)

The lizard doesn't die the first day it doesn't have the calcium.

But the day that it rears its head, it's too late then.

And you seem okay every day between we stopped giving the lizard calcium and it died.

It seems I swear to god, they seem fine right up until they fall over dead.

And I think Yeah.

Scott Benner (59:54)

I don't know.

I was thinking about that the other day, and I don't know that people associate simple things like vitamin d, you know, your insulin.

These are things that are additive to your body that you need to add in in the right amounts to put yourself in an optimal situation.

And I it's hard to think about it that way, but keeping the lizards simplifies it for me.

And and

Jordon (1:00:20)

You understand it better.

Scott Benner (1:00:22)

Just for having watched one of them

Jordon (1:00:24)

Implementing it on a small scale.

Scott Benner (1:00:25)

For watching one of them have lived well with it and healthily, and, you know, I've had animals die too, and you don't know why exactly.

But I don't know.

I just I wish everybody Arden's friend called the other day.

They're on the phone.

She's she's of Indian descent.

Scott Benner (1:00:40)

She's brown person.

She just moved to, like, somewhere really cold, and she started talking about issues on the the the FaceTime talking.

The FaceTime.

Look at me.

Like, a thousand years old.

Scott Benner (1:00:50)

Yeah.

But bring the box on so I can see, I could see the Merv Griffin show.

Jordon (1:00:54)

Bring the box.

Scott Benner (1:00:55)

So I'm talking to her, and she's she's feeling a little run down.

I said, are you taking vitamin d?

And she goes, no.

I'm like, you're a brown person living where there's no sun.

Please take vitamin d.

Scott Benner (1:01:04)

What are you doing?

Jordon (1:01:05)

Your body's not too happy with you.

Scott Benner (1:01:07)

So I said I said, what are you doing?

And so I'm texting her a link.

I'm like, you buy this right now.

Take one every day.

Don't make me come up there and yell at you.

Scott Benner (1:01:14)

There's simple thing you just don't realize until, you know Yeah.

It's too late.

Or, by the way, it's never deficient enough to actually hurt you significantly, but you have a lessening of what your health could look like throughout your entire life.

You know what I mean?

Yeah.

Scott Benner (1:01:32)

And and just for for what?

Mhmm.

Like, eat an egg once in a while.

Have a little bit of red meat.

Have some chicken.

Scott Benner (1:01:38)

Do the thing.

Take a vitamin.

It's Jordan, please.

Are you taking vitamins?

Jordon (1:01:44)

Yeah.

Good.

Scott Benner (1:01:45)

Good job.

Thank you.

I appreciate that.

I appreciate that.

Every day, it's not hard.

Scott Benner (1:01:51)

They're right in front of me.

Right here.

I keep them on my desk.

Jordon (1:01:53)

It's funny.

I actually listened to the supplement episode recently, and, and started being a little more regular with them and taking digestive enzymes and all

Scott Benner (1:02:05)

that stuff.

Better?

Jordon (1:02:07)

Yeah.

Good.

I do.

Yeah.

I was having a not quite sure if I might be having my second of the the autoimmune trifecta flare up now, but I feel like I don't digest food anymore.

Scott Benner (1:02:21)

Well, you do you think it's celiac?

Do you think it's just you having losing some of that functionality from your pancreas with digestion?

Jordon (1:02:28)

Oh, the latter.

Because celiac, from what I understand, is would be a little more obvious after eating

Scott Benner (1:02:36)

Stuff like that.

Jordon (1:02:37)

Gluten in it, and and I don't necessarily have those symptoms.

Care

Scott Benner (1:02:41)

of It's not that difficult.

Look.

Really look.

Listen.

Jordon (1:02:44)

I'm just

Scott Benner (1:02:44)

I'm just taking out my vitamins right now.

I'll put them on my desk so that when you and I are done, I can take them.

I can I tell you the a funny vitamin story?

Because we are we're getting into it now.

Okay.

Jordon (1:02:54)

Yeah.

Do it.

Scott Benner (1:02:55)

So I'm driving I don't know.

I think I was driving home from Georgia when Arden was in school there.

Mhmm.

And, I bring my vitamins with me.

I'm a I'm an I'm a I'm one of those old people who just throws a pill in their pocket.

Scott Benner (1:03:07)

I have no problem with it.

I'm driving home, and I think, oh, I haven't taken my vitamins.

I just ate something.

I'll take my vitamins now.

And I take them, but I must not have drank enough with them and didn't realize it.

Scott Benner (1:03:20)

So

Jordon (1:03:21)

Yeah.

Scott Benner (1:03:21)

It's a half an hour later.

This is such a weird this is one of the weirdest experiences of my life.

I burped, and this powder cloud came out of my mouth.

And I thought

Jordon (1:03:36)

I've had the metamucive burst.

Scott Benner (1:03:37)

Thought, oh my god.

I'm gonna die.

This is it.

Like, right like, right here.

Oh, like, maybe I should pull over so I don't crash my car.

Scott Benner (1:03:44)

When when obvious imminent death happens to me next.

And I panicked for a second, and I was like, what the hell just happened?

And then it took me a minute, and I put two and two together, and I'm like, I don't think I drank enough with the vitamin if the capsule opened up in my way.

I don't know where.

Like, I'm not good enough with, like, with how the body is designed to actually, like

Jordon (1:04:07)

Yeah.

Like, in your esophagus?

Scott Benner (1:04:09)

Sub.

Right?

Like, that it's insane.

But I was, like, puff the magic dragon there for a second.

Yes.

Scott Benner (1:04:16)

It's like, oh, look at this.

It's really great.

Nevertheless, drink a lot of water with your with your pills.

That's what I wanted to say.

Jordon (1:04:23)

Yeah.

Good note.

Scott Benner (1:04:24)

Good note.

Good note.

I'm older than you by, like I'm, like, twice as old as you.

So do you like the information from the podcast enough to put up with listening to an old man's podcast, or does it not feel that way to you?

Jordon (1:04:40)

For sure.

I think well, my, my style of, like, communication is a little different, I think, from a lot of the younger people I'm around.

So I I feel like I I do kinda click with, like, your sense of humor and stuff a little bit more, so I I don't have a problem listening to it.

And I like the messages.

You know, every now and then I I'm like, oh, Scott.

Scott Benner (1:05:08)

You know?

Here he is.

Jordon (1:05:10)

But but, no, I I really enjoy it.

I think the way that you because the way people talk online, it's like, oh, this guy telling everyone to, you know, just take a bunch of insulin and blah blah blah, but you've repeated, you know, over and over about how like, that's not what you're telling me.

Scott Benner (1:05:29)

Right.

Jordon (1:05:30)

Do you encourage people not to just take your word as law?

And, that's that's exactly how I think.

Like, I'm not just going to settle for for one opinion, but I'll absolutely take good sounding advice and and try to look for

Scott Benner (1:05:48)

on me online?

I don't look.

Is that happening still?

Jordon (1:05:51)

Actually, you know what?

What I saw might have been from a couple

Scott Benner (1:05:54)

years ago.

There was a couple of years ago where, like, that I think people, like, misunderstood the idea of, like, that bold with insulin message.

And, like

Jordon (1:06:03)

Yeah.

It was seemed like it was around, like, heavy coke.

Scott Benner (1:06:06)

Yeah.

But, yeah, extra crazy during COVID.

Jordon (1:06:08)

Yeah.

Scott Benner (1:06:09)

Yeah.

Yeah.

Jordon (1:06:10)

Yeah.

Well, I mean

Scott Benner (1:06:12)

yeah.

Well, no.

Listen.

A lot of listen.

You don't realize how much of the crazy gets focused on, like, day to day life stuff.

Scott Benner (1:06:17)

And then when you take away the day to day life stuff, they got extra crazy, you gotta point it somewhere.

Jordon (1:06:22)

Yeah.

Yeah.

Well, and what do they call those people that are supposedly so pissed off with you, but they probably listen to every single episode and they Yeah.

Scott Benner (1:06:30)

I'll take it.

Jordon (1:06:31)

Yeah.

Scott Benner (1:06:31)

I don't care.

I don't I Yeah.

Possibly mean couldn't mean less to me.

I I I need the downloads.

We're good.

Jordon (1:06:37)

Alright.

Scott Benner (1:06:37)

It's a pretty it's a pretty simple system.

You know what I mean?

You listen.

I sell ads.

I get to keep making my podcast.

Scott Benner (1:06:44)

So Yeah.

Yeah.

Keep listening.

Thank you.

Jordon (1:06:47)

Whole life.

Scott Benner (1:06:50)

Have you ever seen the lion king?

Jordon (1:06:52)

Oh my god.

Scott Benner (1:06:53)

Do know Arden's never seen the lion king?

Jordon (1:06:55)

Yeah.

No way.

What is

Scott Benner (1:06:56)

how old

Jordon (1:06:56)

are you?

Scott Benner (1:06:57)

She'll be 22 in a couple months.

Jordon (1:06:59)

Oh my god.

Yeah.

Scott Benner (1:06:59)

She's try we try so hard to get her she's like, I don't care.

I'm like, okay.

So she really

Jordon (1:07:06)

I mean, she'll feel differently after she fight.

It's inevitable.

It's inevitable.

Scott Benner (1:07:10)

I don't think so.

Jordon (1:07:12)

She'll be like, what's wrong with

Scott Benner (1:07:13)

She's very stubborn.

Jordon (1:07:14)

This.

Yeah.

Scott Benner (1:07:16)

Very, very stubborn.

Jordon (1:07:18)

I love hearing the way that you guys you guys talk to each other.

It's hilarious.

Scott Benner (1:07:22)

I wish she'd come on the podcast more.

She's busy.

Jordon (1:07:25)

I was like

Scott Benner (1:07:26)

Going to college.

Jordon (1:07:26)

I was surprised to hear it how she spoke about diabetes in the podcast, but I understand it, and I think it's really funny.

Scott Benner (1:07:33)

Yeah.

She really is, she's got a different way of thinking about it.

That's for sure.

It's her own way.

So I I think it's a good I think it's a good lesson, though, to hear that, you know, whether you're an adult or a person who's, you know, taking care of a child with diabetes, your expectation of how people are gonna deal with things or think about them or even feel about them, your expectation has probably very little to do with how they're actually going to respond.

Scott Benner (1:07:58)

So

Jordon (1:07:58)

Oh, for sure.

Yeah.

Yeah.

Because I thought my one close friend with type one when I was diagnosed was like, oh my god.

I'm so excited to have, you know, someone else.

But then but I really like talking about it, honestly.

Jordon (1:08:14)

Mhmm.

And maybe that's because I'm so new, and and she's been in it for a decade.

But it it's just I I'm not met with the same energy, you know

Scott Benner (1:08:23)

She don't

Jordon (1:08:23)

about it and Yeah.

She doesn't care.

Yeah.

And, and that's fine.

Scott Benner (1:08:29)

Yeah.

No.

I just think it's I think it's valuable because I think a lot of times either people can judge themselves against others.

Like, I guess this is how I should feel about it or this is how I should think about it.

Or parents, I think, put their feelings about it onto their kids.

Scott Benner (1:08:42)

They're like, well, this is how they're gonna deal with it or I know they're gonna grow up fine.

Like, you you don't know how anybody's gonna grow up with Like, this is not a Right.

This is not a preplanned thing.

Just because it's the way you handle it doesn't mean it's the way they're gonna handle it.

You might be better or worse at it than they are or will be, and there's not a lot you can do about that.

Scott Benner (1:09:00)

You you know?

Jordon (1:09:00)

No.

Not at all.

Because I mean yeah.

Yeah.

Yeah.

Jordon (1:09:04)

I'm sorry.

I just saw it's a long time.

Scott Benner (1:09:06)

Yeah.

Yeah.

Jordon (1:09:06)

Been talking for a long time.

I'm sorry.

Scott Benner (1:09:08)

No.

Don't be sorry.

What are sorry about?

But we will we will wrap up, though.

This was lovely.

Scott Benner (1:09:13)

I do really appreciate Alright, man.

Hold on one second for me.

You were terrific.

Thank you for doing this.

I really appreciate it.

Jordon (1:09:18)

Thank you, Scott.

Yeah.

Scott Benner (1:09:26)

Today's episode of the Juice Box podcast was sponsored by the new Tandem Mobi system and Control IQ plus technology.

Learn more and get started today at tandemdiabetes.com/juicebox.

Check it out.

This episode was sponsored by Touched by Type one.

I want you to go find them on Facebook, Instagram, and give them a follow, and then head to touchedbytype1.org where you're gonna learn all about their programs and resources for people with type one diabetes.

Scott Benner (1:09:56)

Today's episode of the juice box podcast is sponsored by the Eversense three sixty five.

You can experience the Eversense three sixty five CGM system for as low as $199 for a full year.

Visit eversincecgm.com/juicebox for more details and eligibility.

Okay.

Well, here we are at the end of the episode.

Scott Benner (1:10:19)

You're still with me?

Thank you.

I really do appreciate that.

What else could you do for me?

Why don't you tell a friend about the show or leave a five star review?

Scott Benner (1:10:28)

Maybe you could make sure you're following or subscribe in your podcast app, go to YouTube and follow me, or Instagram, TikTok.

Oh, gosh.

Here's one.

Make sure you're following the podcast in the private Facebook group as well as the public Facebook page.

You don't wanna miss please, do you not know about the private group?

Scott Benner (1:10:48)

You have to join the private group.

As of this recording, it has 74,000 members.

They're active talking about diabetes.

Whatever you need to know, there's a conversation happening in there right now.

And I'm there all the time.

Scott Benner (1:11:01)

Tag me.

I'll say hi.

Check out my algorithm pumping series to help you make sense of automated insulin delivery systems like Omnipod five, Loop, Medtronic seven eighty g, Twist, Tandem Control IQ, and much more.

Each episode will dive into the setup, features, and real world usage tips that can transform your daily type one diabetes management.

We cut through the jargon, share personal experiences, and show you how these algorithms can simplify and streamline your care.

Scott Benner (1:11:32)

If you're curious about automated insulin pumping, go find the algorithm pumping series in the Juice Box podcast.

Easiest way, juiceboxpodcast.com, and go up into the menu.

Click on series, and it'll be right there.

Hey.

What's up, everybody?

Scott Benner (1:11:45)

If you've noticed that the podcast sounds better and you're thinking, like, how does that happen?

What you're hearing is Rob at Wrong Way Recording doing his magic to these files.

So if you want him to do his magic to you, wrongwayrecording.com.

You got a podcast?

You want somebody to edit it?

Scott Benner (1:12:03)

You want Rob.

READ FULL TRANSCRIPT

```