#1843 Two Fancy Pill Boxes - Part 2

Suzanne returns to discuss managing Addison's disease and T1D, detailing emergency injection protocols and steroid-induced insulin resistance. They also tackle dinner pre-bolusing struggles and diabetes social media burnout.

Companies that Support Juicebox

Simplify Lifewith Omnipod

DexcomG7 15 Day Sensor

Save 20%Save 20% with offer code: JUICEBOX

US MEDGet your Diabetes Supplies

ContourEasy to Use and Highly Accurate

MiniMedMake everyday a better day

TandemControl-IQ+ with AutoBolus

CommunitySupport Touched By Type 1

EversenseOne Year One CGM

Simplify Lifewith Omnipod

DexcomG7 15 Day Sensor

Save 20%Save 20% with offer code: JUICEBOX

US MEDGet your Diabetes Supplies

ContourEasy to Use and Highly Accurate

MiniMedMake everyday a better day

TandemControl-IQ+ with AutoBolus

CommunitySupport Touched By Type 1

EversenseOne Year One CGM

Key Takeaways

• Addison's Emergency Protocols: Severe physical stress, such as a broken bone or severe illness that prevents medication absorption, requires individuals with Addison's to administer an emergency injection of liquid cortisone to prevent a life-threatening adrenal crisis.
• Sick Day Rules & Medications: Introducing medications like GLP-1s requires caution for those with Addison's. Side effects like vomiting and diarrhea can prevent the body from absorbing crucial daily oral steroids, potentially triggering an emergency.
• Value of True Community: Navigating the oversaturation of diabetes content on social media can be draining. Finding a genuine, interactive support system—like a dedicated Facebook group—often provides deeper, more reliable support than fleeting, algorithm-driven trends.
• Dinner Pre-Bolusing Hurdles: Remembering to pre-bolus during the chaotic time of making dinner is a common challenge. Planning the specific macros (carbs, fat, and protein) for your typical meals ahead of time can reduce decision fatigue and improve post-meal numbers.
• Managing Fat and Protein: Meals heavy in fat and protein often result in a delayed blood sugar rise. Utilizing pump features like an extended bolus (on the Tandem pump) or manually staggering insulin doses can help counteract these later spikes.

Resources Mentioned

• Able Now: ablenow.com
• Contour Next Gen Blood Glucose Meter: contournext.com/juicebox
• Tandem Insulin Pump: Mentioned for its extended bolus features.
• TrialNet Study: Mentioned as a screening resource for family members of those with Type 1 Diabetes.
• Wrong Way Recording: wrongwayrecording.com
• Juice Box Podcast Website & Private Facebook Group: juiceboxpodcast.com

FULL EPISODE TRANSCRIPT

Introduction

Scott Benner (0:00)

Welcome back, friends, to another episode of the Juice Box podcast.

Suzanne (0:14)

Hi. My name is Suzanne, and I have been a type one diabetic for fifty one years. I feel like I was diagnosed in the dark ages.

Scott Benner (0:25)

This is part two of a two part episode. Go look at the title. If you don't recognize it, you haven't heard part one yet. It's probably the episode right before this in your podcast player. The podcast contains so many different series and collections of information that it can be difficult to find them in your traditional podcast app sometimes. That's why they're also collected at juiceboxpodcast.com. Go up to the top. There's a menu right there. Click on series, defining diabetes, bold beginnings, the pro tip series, small sips, Omnipod five, ask Scott and Jenny, mental wellness, fat and protein, defining thyroid, after dark, diabetes variables, grand rounds, cold win, pregnancy, type two diabetes, GLP meds, the math behind diabetes, diabetes myths, and so much more. You have to go check it out. It's all there and waiting for you, and it's absolutely free. Juiceboxpodcast.com. Nothing you hear on the Juicebox podcast should be considered advice, medical or otherwise. Always consult a physician before making any changes to your health care plan.

Sponsors: Able Now & Contour Next Gen

Scott Benner (1:29)

This episode is sponsored by Able Now, tax advantaged savings accounts for eligible individuals with disabilities. If you or your child lives with diabetes, you may qualify for an ABLE account because of ongoing medical needs, and many people in the diabetes community do. With ABLE Now, you can save for future expenses without affecting eligibility for certain disability benefits such as Medicaid. Learn more and check your eligibility at ablenow.com. You spell that ablenow.com. Today's episode is also sponsored by the Kontoor Next Gen blood glucose meter. This is the meter that my daughter has on her person right now. It is incredibly accurate and waiting for you at kontoornext.com/juicebox. Why does that matter?

Addison's Disease and Emergency Protocols

Suzanne (2:19)

I don't know if it does. I don't know if it does. It I also am a bit scared, full disclosure, of how my body will respond. I have not been in a crisis, knock on wood Oh, since okay. The first diagnosis in that whole like, I was in a crisis when I went into the hospital both times. Right? Both hospitals.

Scott Benner (2:40)

Yeah.

Suzanne (2:41)

So I don't know how I respond. I worry about, although I know there are things you can do, but I worry about the gastro effects because you know with diarrhea and vomiting then it becomes a whole another game with the Addison's and the steroids.

Scott Benner (2:57)

Mhmm. The the most significant danger GLP medications commonly cause nausea, vomiting, and diarrhea, especially when first starting or increasing the dose for someone with Addison's vomiting or severe diarrhea is dangerous because it can prevent the absorption of your daily oral steroids. If your body doesn't absorb these hormones, you could rapidly trigger a life threatening adrenal crisis. Oh, so you're worried it oh, so you don't know how youre gonna, like, take to them. I would Yeah. Listen. I am not the right person to ask about this, but

Suzanne (3:28)

But you love them.

Scott Benner (3:29)

I have used them. Used them. Took it yesterday. I I hugged the pen when I was done with it. And, before I threw it in the trash, I said, thank you. I whispered in a tear. I mean, maybe you could get the endo to help you, like, like, microdose it at first to try.

Suzanne (3:45)

I think it's a not now. Yeah. I think I'm also still getting used to this. You know? Okay. I have look. I'm not one to try to have I've I have never been one to have my diabetes stop me from something. Addison's, I kinda feel like is a whole another game. I've decided, like, I'm not going back to paddle because if I fall and break a bone, for example K. I've gotta have that emergency injection. And then I've gotta explain to everybody, like, if I fall, I have to have this emergency injection. And let's not forget, it's not like an EpiPen. Mhmm. You've gotta mix it. Take it. It's like old days of glucagon.

Scott Benner (4:23)

You have to explain this better. What those, like, your sick like, sick day rules, right, for Addison's?

Suzanne (4:28)

Yes.

Scott Benner (4:28)

Yeah.

Suzanne (4:29)

Tell me. Sick day rules for Addison's. So if you break a bone, you fall, you do something like that, which is why I'm not gonna play paddle, and I I'm not gonna go skiing. Like, my family just went skiing this couple weeks ago.

Scott Benner (4:40)

I'm like, nope.

Suzanne (4:40)

I'm not doing it. No. I went, but I didn't ski. I worked out in the gym. I did other things. If something like that were to happen, you have to have this emergency injection because normally, your body would produce all of this cortisol to deal with the stress of that injury to allow for you to heal and just deal with what what's going on. I would not have that extra cortisol, so you have to take this emergency injection of of, liquid cortisone

Scott Benner (5:09)

Okay.

Suzanne (5:10)

To prevent a crisis. Also

Scott Benner (5:13)

Then that changes your steroids. Right?

Suzanne (5:15)

So well, it changes the steroids?

Scott Benner (5:18)

Would you need more steroids if you had to take the emergency injection?

Suzanne (5:20)

Yeah. So the cortisol is the is the steroid emergency injection. It's the same thing. Depending on like like, if I'm in the hospital, say, you would I'd be on a higher dose of steroids, and then I'd have to taper down, like, after an injection most likely. Okay. You know, there's so

Scott Benner (5:35)

many different like so you take them orally usually, but in a sick day crisis, it would be an injection?

Suzanne (5:40)

No. No. In a sick day crisis, I would up my dose. But in an emergency situation like a broken bone, you have to have that injection.

Scott Benner (5:48)

That is the injection. Okay.

Suzanne (5:49)

Yeah. Or if it's a sick day and I cannot keep the pills down, I would have to do the emergency injection and then go to the ER.

Scott Benner (5:57)

And has that happened yet?

Suzanne (5:59)

Knock on wood. No.

Scott Benner (6:00)

You are coasting now as far as a person with all your issues could coast, and you're very scared to upset the apple cart. Yeah. Yeah. That makes a lot of sense to me, by the way.

Suzanne (6:09)

I'm even like so this is I don't know. This is kinda silly. But, like, I think my biggest fear with the Addison's is, like, a car accident. Oh. Right? Because if I'm in a car accident, I have to have that injection.

Scott Benner (6:23)

Are you still in the city? No. No. You're out

Suzanne (6:26)

of Okay. Yeah. Connecticut suburbs. Yeah. So

Scott Benner (6:30)

And people in Connecticut really can't drive, so that might be a problem.

Suzanne (6:33)

Not drive.

Scott Benner (6:34)

Yeah. Yeah. Horrible. Well, it's because they lived in Manhattan their whole lives. Yeah. Yeah. Then they bought a car.

Suzanne (6:39)

Assholes. They make assholes look good now, almost. It's so bad.

Weather and Moving South

Scott Benner (6:43)

We had to go to Boston recently, and Arden goes, why are we not driving? And I was like, I do not wanna drive through Connecticut and Massachusetts. Yeah.

Suzanne (6:50)

Yeah. It's horrible. Yeah. It's bad. So, you know, in many ways, it's I I would say I'm not fearful of the diabetes. I'm more fearful of the Addison's, and I don't know if that's because it's all new. Or, I mean, I think they're legitimate, quite frankly, legitimate reasons

Scott Benner (7:09)

Maybe not.

Suzanne (7:09)

To be fearful of Yeah.

Scott Benner (7:10)

Also, doctor knows you and no one else. So, like, you will be doing a little bit of an experiment together. Also, let me just say to the people in Massachusetts, I don't think you're assholes. I love you, and thank you for listening. Please don't unsubscribe. Yes. Yeah.

Suzanne (7:23)

We have great friends

Scott Benner (7:23)

from Massachusetts.

Suzanne (7:24)

I agree. I agree.

Scott Benner (7:25)

Oh, it's just it's just so cold there. Other than that, it's

Suzanne (7:28)

it's fun. Anyway, snow here today.

Scott Benner (7:32)

You know what? It was 82 degrees yesterday, and then my and Arden comes home and she's, did you hear it might snow today? And I went, why are we not moving? Why will no one listen to me when I tell you to move south? I'm can I tell you something? I am I just said yes to doing a one day speaking event in Atlanta for Touched by Type one

Suzanne (7:52)

Mhmm.

Scott Benner (7:52)

In April. And I would normally just jump on the plane and because I live I mean, I live in Central Jersey. I could actually despite the news that came out of Trenton the other day, I could jump on one of those quick Trenton flights to go right to Atlanta. Right?

Suzanne (8:06)

Mhmm.

Scott Benner (8:07)

And drive fifteen minutes from my house, get on a plane, land in Atlanta, come home, $20 to park, be home fifteen minutes after the plane lands. Like, so

Suzanne (8:15)

That's so crazy.

Scott Benner (8:16)

So I'm like, maybe I'll do that. But then I thought, maybe I'll drive. And I still sound crazy at first because maybe I'll take a couple days on the way home and go through some of the parts of the South that I keep trying to tell my wife we should move to for weather and tax purposes. Maybe I'm gonna do that to see if it's just something I'm saying out loud that I don't mean. Like, do you know what I mean? Like, Mhmm. Mhmm. I just I wanna I wanna

Suzanne (8:39)

What parts of the South would you wanna drive through? Because I grew up in Southern Virginia.

Scott Benner (8:43)

I've been looking at houses east of, like, Nashville. Oh. Yeah. Because of the Tennessee That's not on your way

Suzanne (8:51)

to Atlanta, by the way.

Scott Benner (8:52)

Well, no. I I can leave Atlanta. I could drive south about three and a half hours or north north and and end up in Nashville. Yeah. Oh, and then go maybe go home through, like, the maybe I'll do the mountain. Like, it's instead of going all the way back to '95, maybe I'll go up through, you know, like, through the other pathway up north.

Suzanne (9:09)

Okay.

Scott Benner (9:09)

But my point is is that I don't know if you know there's no income tax in Tennessee.

Suzanne (9:14)

I did not know.

Scott Benner (9:15)

Yeah. But now you know and you're thinking, where's Scott? I'll meet you. We'll take a look around.

Suzanne (9:19)

Yeah. Just tell my husband he'll be there.

Scott Benner (9:20)

She's never gonna let me move. She hasn't let me do one thing I wanted to do since I met her, so I don't know why I think this is gonna work out.

Suzanne (9:28)

Yeah. Yeah.

Scott Benner (9:28)

But

Suzanne (9:29)

But you know you go. Yeah. Yeah.

Scott Benner (9:31)

Maybe a condo. Yeah. Why do we both have to go? We've been married thirty years.

Suzanne (9:36)

Right. We talk about this stuff often too. And, you know, the bottom line is for us, because of me, is health care.

Scott Benner (9:46)

You wanna stay close to health care. I know it is one of the it is one of the thoughts. All the Vanderbilts down there, they must know what they're doing. Right?

Suzanne (9:52)

They have to know what they're doing. Yeah. Yeah. So Yeah. Know, I feel very fortunate to have the doctors that I have because it's not like this everywhere.

Scott Benner (10:01)

No. No. For sure. You could be I listen. I talked to plenty of people who never get answers about anything. And Yeah. And for the struggle you're having, who knows how much less it is because of, you know, of the health care you have access to.

Suzanne (10:13)

Absolutely. Yeah. Absolutely.

Scott Benner (10:15)

No. I I take your point. I I really do. I the the problem here is is that I'm not wealthy because I would just live there part that you know, enough days for tax reasons and then come back here for other stuff.

Suzanne (10:26)

But Right.

Scott Benner (10:27)

I really don't want I do hate the cold. I wanna say that. I'm very upset by the cold. And I just the you know, the last two days, walking outside was such a joy the last two days.

Suzanne (10:37)

So nice.

Scott Benner (10:38)

Yeah. So

Suzanne (10:39)

While the piles of snow are melting.

Scott Benner (10:41)

Are there not other people who ex enjoy that more frequently is what I'm saying? And Yeah. Couldn't I be one of them, please?

Suzanne (10:47)

Right. Right.

Scott Benner (10:48)

Kelly's gonna say no. She's gonna say the kids are here. We don't know what Arden's doing yet. We can't move away. Yeah. I'll be like, just make them they they don't have money. Like, we'll just force them to come with us.

Suzanne (10:59)

Yeah. Yeah. They can follow you.

Scott Benner (11:02)

You say have no choices is what I'm saying.

Suzanne (11:04)

We could just Right. They're still relying on you. We could

Scott Benner (11:06)

just strong-arm them. I mean, it wouldn't be that big of a deal. They'd get over it eventually.

Suzanne (11:10)

Yeah.

Scott Benner (11:10)

I don't know.

Suzanne (11:11)

And you have the beauty if you can work from wherever you are.

Scott Benner (11:13)

It doesn't matter where I'm at. As long as the Internet's good, I'm rock solid. Yeah. Yeah. Yeah. Yeah. She seems to think her biz her job would like her to be at work, and I'm like, can't we? I'm sure we could work it out. Yeah. Yeah.

Suzanne (11:26)

We make flexible.

The Yellow Tree Monitor

Scott Benner (11:27)

By the way, I'm not getting enough credit for this episode. What no one knows but me is that I I I think I've said this once. I'll say it one more time just so it kinda covers. My original chameleon died recently, like, few months ago.

Suzanne (11:41)

Sorry.

Scott Benner (11:41)

Thank you. She was lovely, and she she lived at a reasonable time and and did okay. But she left me with a bunch of space, and I did replace her not replace her, but I got something different. But I I didn't get a chameleon this time. I got a tree monitor, and she is running around in there like a crackhead.

Suzanne (12:01)

Tree monitor?

Scott Benner (12:03)

Yeah. It's a yellow tree monitor.

Suzanne (12:05)

I'm gonna Google this.

Scott Benner (12:06)

Oh, jeez. You know what? Okay. Go ahead.

Suzanne (12:08)

I wish I had the camera to see them.

Scott Benner (12:10)

Yellow tree monitor. Google that. K. You're gonna get an image. It's either gonna horrify you or delight you. It depends on your on how you feel.

Suzanne (12:18)

Oh, kinda cute. Quince monitor.

Scott Benner (12:22)

She's like, no. Not a Quince.

Suzanne (12:24)

Yeah. Why did it come up Quince monitor?

Scott Benner (12:26)

No. Those are big. I that I couldn't do. This one's smaller.

Suzanne (12:30)

Okay.

Scott Benner (12:30)

Alright. But, anyway, she has what they call the poop zoomies. So she's gone to the bathroom, so she's just thrilled. I most people know what I'm probably have this happen in

Suzanne (12:39)

the mix. My dogs. Yeah.

Scott Benner (12:41)

Yeah. And she is just, like, diving around and taking laps and running up and down and flopping on the ground and then running up the wall. Like, she's just all she's like a crackhead right now.

Suzanne (12:52)

That's so cute.

Scott Benner (12:52)

So, anyway, she she's it's been in the corner of my eye. I'm trying not to look so that I can keep talking to you.

Suzanne (12:58)

I had to drug drug my dogs for this today.

Scott Benner (13:00)

You had to drug your oh, you know what I've I

Suzanne (13:03)

was literally thinking about drugging them, but I gave them some CBD treats, and I shut them in the basement.

Scott Benner (13:09)

You know what I've been wondering the whole time you're talking?

Suzanne (13:11)

Yeah.

Scott Benner (13:12)

Did Jackie get a bonus?

Suzanne (13:15)

Jackie's my life I call her my lifesaver.

Scott Benner (13:17)

I mean, honestly, like, the dog sitter took you to the hospital.

Suzanne (13:21)

Yeah. Look. Jackie's amazing. She also, Scott, stayed with me till, like, one something in the morning. And I was like, Jackie, you gotta go home.

Suzanne (13:28)

Well, and home was to my house

Scott Benner (13:29)

at that point in time. Right? Listen. You gotta go take care of the dogs. As I told you earlier, ABLE Now is sponsoring this episode. ABLE Now, of course, tax advantaged ABLE accounts for eligible individuals with disabilities. If you or your child lives with diabetes, you may qualify for an ABLE account because of ongoing medical needs. Many people in the diabetes community do. With ABLE now, you can save for future expenses without affecting eligibility for certain disability benefits such as Medicaid. And thanks to updates to federal law, ABLE accounts are now available to more people than ever before. That means more individuals and families can use ABLE now to save and invest. Funds in an ABLE now account can be used for a wide range of everyday needs, including education, transportation, health care, assistive technology, and more. There's no enrollment fee, and you can open an AbleNow account with a small initial contribution and build from there. Learn more and check your eligibility at ablenow.com. That's ablenow.com, ablenow.com.

Scott Benner (14:36)

Contournext.com/juicebox. That's the link you'll use to find out more about the Kontoor Next Gen blood glucose meter. When you get there, there's a little bit at the top. You can click right on blood glucose monitoring. I'll do it with you. Go to meters. Click on any of the meters. I'll click on the Next Gen, and you're gonna get more information. It's easy to use and highly accurate. SmartLight provides a simple understanding of your blood glucose levels. And, of course, with second chance sampling technology, you can save money with fewer wasted test strips. As if all that wasn't enough, the Kontoor Nextgen also has a compatible app for an easy way to share and see your blood glucose results. Contournext.com/juicebox. And if you scroll down at that link, you're gonna see things like a buy now button. You could register your meter after you purchase it. Or what is this? Download a coupon. Oh, receive a free Kontoor Next Gen blood glucose meter. Do tell. Kontoornext.com/juicebox.

Scott Benner (15:39)

Head over there now. Get the same accurate and reliable meter that we use.

Social Media Saturation in the Diabetes Space

Suzanne (15:43)

Jackie's amazing. I love her. And, you know, we have started this great friendship because of our diabetes. It's tied us together and obviously the love of our dogs, my dogs. But I live in this great area and yet there is such a lack of a diabetic community. It is shocking. And so I feel like Jackie and I have this great bond with the diabetes and the fact that I call her my lifesaver now. It's just the fact that we can talk to each other about things that are working, things that are not working, and introduce each other to new things. Like, I told her about the glow glucose gummies.

Scott Benner (16:21)

Mhmm. Well, those are good.

Suzanne (16:23)

Or, like, I'm a I'm either those are great. And I even gave her some of my g six transmitters that I don't need anymore. You know? I'm like, here. Take these.

Scott Benner (16:32)

You know, I turned down a speaking engagement in your area recently because it just wasn't deep enough. Like, the

Suzanne (16:39)

I I don't get it.

Scott Benner (16:40)

The topic they wanted was so surface. I was like, I'm not driving all the way up there forever.

Suzanne (16:44)

Who was gonna do it? Who was gonna do

Scott Benner (16:45)

the talk? Wanna say. But, like, I don't wanna I don't wanna bad mouth anybody. But I got I mean, they invited me, but then the topic they wanted was just so it felt surface y. So I I I pushed and pushed back. I I offered back. I said, why don't you let me do something more like this? And I think the person calling me wanted to, but I don't think it worked out with their scheduling or how much time they had in their space and stuff like that. So maybe they'll try again next year.

Suzanne (17:10)

Like like, I don't get it. Like, this is this is a suburb of New York City. Right? I'm in Connecticut. Right?

Suzanne (17:15)

Suburb of New York City. And there have to be a ton of other diabetics.

Scott Benner (17:20)

Yeah.

Suzanne (17:20)

And there is no that I have found, like, I've tried to Google this, there is no support group here. I I just to me, it makes no sense.

Scott Benner (17:28)

Yeah. Well, I mean, people don't what I've learned doing what I do is that if there's not an appetite for something, then doing it is it's expensive, and and it ends up feeling like a waste of time. Yeah. I just closed down a social media thing I was doing that I think is fantastic. Yeah.

Scott Benner (17:44)

I think it's absolutely fantastic. It just didn't catch on with people. So I'm like, okay. Fair enough. Like, I'm not gonna beat my head against this wall. Like, I'll close it up. I'll save the money, and and I'll put the effort somewhere else. You know? But everything everything doesn't always work.

Suzanne (17:58)

No. But Facebook works for

Scott Benner (18:00)

It really does.

Suzanne (18:01)

I think it's great.

Scott Benner (18:02)

Yeah.

Suzanne (18:02)

Yeah.

Scott Benner (18:02)

Yeah. No. It's awesome. It's funny. I was looking today.

Scott Benner (18:05)

I I started getting myself worked up this morning, and I realized if I was a different kind of I can't believe I'm gonna say content creator. But if I was a different kind of content creator, I would definitely rant and rave about this. I feel like the diabetes space online is starting to get oversaturated. That worries me because I think that ends up pushing people away. When you have too much when there's too much, I think it becomes noisy and then people just kinda run. I'm watching big organizations put up their social media, like, stuff stuff I, like you know, not only do I agree with, but, like, I'm supportive of, like, this one thing I'm thinking of. I would never out them, but, like, if this really well conceived piece of social media they put up, it's got two likes in after seven days.

Suzanne (18:48)

Oh.

Scott Benner (18:49)

No one sees this. And there's a another thing. They couldn't possibly have better production value in these videos they're making and 1,400 views on Instagram, which means, like, five people might have looked at

Suzanne (19:03)

it. Mhmm.

Scott Benner (19:04)

Mhmm. You know what I mean? And it's just there's an oversaturation. Like, everybody I think you're all doing the wrong thing. But God bless you.

Scott Benner (19:11)

You're gonna do it. I know you are. But, like, they're chasing social media trends, but trying to adapt it to diabetes. I don't think anybody cares. It doesn't touch me.

Scott Benner (19:21)

I live in a bubble as far as that stuff goes, like, the the way the podcast operates. But I feel bad because there's so much desire to do something, and I just feel like they're they're putting all that effort into the like, it would be much better to just start a like a I think, like, a group in Connecticut for people to get together and talk once a month. They would be much less expensive. It wouldn't look exciting because, you know, maybe 30 people would show up, but those 30 people would really be helped by that. Yeah.

Scott Benner (19:48)

And, you know, I don't know. Like, I'm I sound like an old man who's like saying, get off your I want you off my lawn now. You're making the same mistake that the blogging world made, like, fifteen years ago. Mhmm. They're oversaturating it.

Scott Benner (20:01)

They're gonna kill it.

Suzanne (20:02)

And they spent money to figure that out too.

Scott Benner (20:04)

A lot. The I mean, there's a ton like, don't get me wrong. Some of it works. You have to boost it. You have to, like, pay it's gotta be paid stuff, like, stuff like that.

Scott Benner (20:12)

Like, just generically, like, nothing works anymore. Like Yeah. You know what I mean? Like, I don't even think of my social media social media. I think of it as a way to just connect with people who listen to me who are looking to, like, interact on those like, I'm not trying to grow on Instagram or something like that.

Scott Benner (20:27)

I couldn't maybe possibly care less. I don't know. Like, there's just so much effort and money being put into this stuff, and I think it's because they're all afraid not to be doing it. Like, they it's like it's like FOMO. Yeah.

Scott Benner (20:40)

Like, they really feel like, well, what if we I think they should all just stop. Yeah. I don't think I don't think it's doing any

Suzanne (20:47)

somewhere else?

Scott Benner (20:47)

Yeah. I don't think it's doing anything. It looks like something. It's great to go on LinkedIn and pat each other on the back all the time, say, look at all the stuff we're doing. I'm like, hey.

Scott Benner (20:55)

You guys are the only ones that say it, but god bless you. It's shiny. It looks great.

Suzanne (20:59)

Now I'm wondering what you're I'm wondering.

Scott Benner (21:01)

I'd be happy to tell you once we're not recording, but I just calling. I'm not

Suzanne (21:04)

across my feeds.

Scott Benner (21:05)

I don't want I don't want people to, like, like, I'm listen. They should you know, if that's what they wanna do, they should do it. I just think if you were if you consulted with me and said, what should I do? I would say I would definitely not spend all that money on making that fancy video that four people looked at.

Suzanne (21:19)

Right.

Scott Benner (21:20)

You know? So and by the way, I'm gonna guess you're two of them. So

Suzanne (21:25)

If not four.

Scott Benner (21:26)

So COVID outed everybody. Right?

Suzanne (21:29)

Right.

Scott Benner (21:29)

Because everyone tried to pivot digital during COVID.

Suzanne (21:34)

Mhmm.

Scott Benner (21:34)

And, like, I have said this before, so I'll say it again. Like, I knew what was gonna happen back when the JDRF tried to go live on Facebook, and, like, 11 people were watching. And I and I was one of them. And I was just going, oh my god. There's only 11 people watching this.

Scott Benner (21:49)

So, like, I wasn't watching it for the content. I was watching it because it seemed like a it seemed like a car wreck to me. Right. Then then suddenly, all these institutions that would like they they looked big online because they have so many followers. Like, you don't realize they're historical followers.

Suzanne (22:06)

Mhmm.

Scott Benner (22:07)

You know what I mean? Like, oh, we have I have a 100,000 people following me. Like, no. You don't. You know what I mean?

Scott Benner (22:11)

Like, you've collected a 100,000 people over the last fifteen years.

Suzanne (22:14)

They're following you.

Scott Benner (22:16)

You're posted 20 likes. There's there's 20 people following you. Yeah. Yeah. Like, that's why I'm I'm super proud of the of our Facebook group because it does, like clockwork, between 90 is the low number, up to a 160 is the high number, daily new posts.

Suzanne (22:36)

That's amazing.

Scott Benner (22:37)

Yeah. And then likes, a a combined collection of likes, comments, hearts like that Yeah. Between eight and nine thousand a day.

Suzanne (22:46)

I'm so bad. I never I I I skipped the likes and the hearts and all that.

Scott Benner (22:52)

Even put put that into context. Yeah. Right? Like, most people don't like heart and comment. And yet

Suzanne (22:58)

And it's not that I dislike it. I just don't remember to like it.

Scott Benner (23:01)

Well, you you don't need like, I'm saying, like but still look at all that happens. Like like Mhmm. 8,000 a day is you're a normal person. Like, you don't know about this, but trust me. I get on a phone call with the right person.

Scott Benner (23:13)

They they they're like, oh my god. How do you do this? And I'm like, I just let people talk and treat them like adults. I was like and and I don't I don't push crappy social media, like, trends at them and tell them to be upset about the islet cell problem. And, like, I just let them like, stop.

Scott Benner (23:31)

Stop. Like, just stop using social media around diabetes like social media. Yeah. The only thing that works is outrage. I almost said something I don't wanna say here.

Scott Benner (23:42)

Skin and outrage is the only thing that works. And Right. And you're chasing that, some of you. It's just I mean, it's just I am not a big fan of soliciting, you know, people in bikinis to show you their devices. And but I know that's the only thing that works.

Scott Benner (24:00)

Go ahead and look at any company's social media. The ones where you see more skin get better likes.

Suzanne (24:07)

So interesting.

Scott Benner (24:08)

Yeah. Like and so Sad statement. Yeah. And and it just it's what it is. Right?

Scott Benner (24:13)

Or you you know, the influencers around diabetes who are more popular are generally female. They're generally younger, and they burn out, like, incredibly quickly. Like, so whoever

Suzanne (24:24)

a weird concept to me, like, influencers with the diabetes.

Scott Benner (24:28)

Yeah. I mean, I don't have a problem with it. I'm just saying that, like Yeah. What I'm telling you is that the people looking, they don't care about the diabetes piece. Yeah.

Scott Benner (24:36)

They found you because you have diabetes. They're clicking or scrolling because you're pretty or you're attractive or you're handsome or whatever you are. Like, you you know what I mean? That's it. Like, it's a real I don't know.

Scott Benner (24:48)

Arden and I just did some social media for Omnipod. It's gonna be out pretty soon. And I'm wondering if anybody will even look at it because it's just me talking or Arden Arden's doing pod fill examples, like how to fill a pod. And but I don't think anybody will care.

Suzanne (25:05)

I think people will.

Scott Benner (25:06)

Oh, well, maybe.

Suzanne (25:07)

People will.

Scott Benner (25:07)

I have no idea. But, like, my my point is is that, like, Arden's dressed in filling a pod. So I'm not not sure how that's gonna go. Yeah. Yeah.

Scott Benner (25:15)

Yeah. No. I was I was happy about it. I don't know where any of this goes. So it's still, like, it's cure, outrage, skin, and then strife.

Scott Benner (25:26)

Strife.

Suzanne (25:26)

See, I just think I'm too old for all that other stuff. Like, I would really be interested to see how you fill the cartridge.

Scott Benner (25:33)

Yeah. No. Right. But once

Suzanne (25:34)

I have no idea.

Scott Benner (25:35)

But that would but here's the point about it being social media and, like, all this money that goes into it. You'd be interested in it once. Yes. You'd look and go, oh, wow. Look at that.

Scott Benner (25:43)

Watch it for sixty seconds, and you'd never think about it again. You certainly wouldn't head back to see if they were doing it again next week.

Suzanne (25:49)

I forget to like it also.

Scott Benner (25:51)

And you forget to like it, and that would make those people so sad who worked so well on

Suzanne (25:54)

it. Right.

Scott Benner (25:55)

I mean, if you stop and look at the things that attract people over and over again, they eventually, it burns out. And I'm just saying, I'm shooting a flare up in the air, and I'm telling you all, don't burn this out because you'll lose all these people. They'll be gone. Yeah. And I could use any number of, you know, other I don't know.

Scott Benner (26:17)

Here, I'll I'll do this one. During COVID, people started keeping this is gonna sound crazy because this is not when I started doing it. But, like, during COVID, people started keeping reptiles much more than they used to. It was that thing you could do in your That's

Suzanne (26:33)

interesting.

Scott Benner (26:33)

They could be shipped to you. You could bring like, you know, the cage could be shipped to you. The animal could be shipped to you. And reptile YouTubers blew up. Oh.

Scott Benner (26:44)

People YouTubing about their bearded dragon or something like that. These people were doing half a million views on a YouTube. They they were like, oh my god. This is a job. Peep they were quitting their jobs, like, you know, doing this whole thing.

Scott Benner (27:01)

It's all gone now. Like, it's just all you burned everyone out. Like, you showed them too many goddamn reptile videos, and they went, they were like, uncle, I'm done. I don't care anymore. Leave me alone.

Scott Benner (27:14)

And now there's, you know, one or two remain behind. If you're listening right now, you you know, like, there's a there's a channel called snake discovery. Like, people like that one. It it it held up. There is a guy doing these big videos that were super power like, popular forever.

Scott Benner (27:30)

He's hundreds of thousands of likes or or or views on everyone. Now he does more like forty, fifty thousand views.

Suzanne (27:36)

Oh, wow.

Scott Benner (27:37)

And do I blame people for seeing success and wanting to be a part of it? I don't. I think that's the natural way things work. But when everyone rushes in, you you saturate the market. And then once you saturate it, then you make people sick of it.

Scott Benner (27:53)

And then when they get sick of it, they're gone, and you will never get them back. And only a couple people will remain on top. And that's happening in diabetes right now, I think.

Suzanne (28:02)

It's just too bad.

Scott Benner (28:02)

Yeah.

Suzanne (28:03)

It's too bad.

Scott Benner (28:03)

So, anyway, I watched it happen with blogging. They oversaturated it, and it collapsed. I pivoted out of blogging fast enough to do this. I don't seem to be getting any, I don't wanna say this the wrong way. I think there are people doing cool stuff.

Scott Benner (28:19)

I don't dislike them at all, but they're not competing with me on downloads is probably the nicest way to say it. Do think I'm in a bubble, but eventually this bubble will burst too. It's just not gonna burst because so many people got into it. It's gonna burst because I screw it up or I run out of things to say or whatever happens.

Suzanne (28:35)

I think you feel a huge need. You know, think about me here in this, you know, highly populated area. There is no community. Mhmm.

Scott Benner (28:44)

No. No. And you get to tell your story today about stuff that like, I guarantee you that countless people listen today and went, oh god. Do I have Addison's? That all sounds very familiar.

Scott Benner (28:53)

You know what I mean? But it's gonna have like, that's how people find out about stuff. You know?

Suzanne (28:57)

But people should be aware. You know? Like Yeah. Yeah. I was I mean, I think that's, you know, part of the reason why I wanted to come on here.

Family Autoimmune History and TrialNet

Suzanne (29:03)

You know? I had no clue about Addison's other than the fact that JFK had had it. You know? Now Did he really? Yeah.

Scott Benner (29:11)

I didn't know that.

Suzanne (29:12)

Yeah. Yeah. Okay. And that was, like, one of my attitudes in the hospital. I was like, well, if he can handle the Cuban missile crisis, I think I can handle this.

Scott Benner (29:20)

I can get coffee and take my dogs for a walk for sure. Exactly.

Suzanne (29:23)

Yeah. Yeah. Exactly. Right?

Scott Benner (29:24)

Well Yeah. Yeah. Well, I really I wanna make sure we didn't like, I know I chatted too much at the end there, but, Susan, did we did we miss anything, or did you get everything out you were hoping to say?

Suzanne (29:34)

No. I was gonna say it's funny. You always ask about autoimmune history.

Scott Benner (29:38)

Oh, I didn't do that? Hey, Suzanne. Is there any other autoimmune in your family? Like, I don't know, like brothers, sisters, sisters, uncles all the way down the line?

Suzanne (29:45)

Funny. You should ask ask that, Scott. So my grandmother's sister was a type one diabetic.

Scott Benner (29:50)

Okay.

Suzanne (29:51)

And that's all that I thought there was in our family. And then right after the Addison's diagnosis, I was trying to find, like, paperwork from I knew I had a few pieces of paperwork from when I was younger, you know, that my parents somehow randomly given me a few of these pieces of paper about my care. And by the way, we had done genetic counseling when we were married to see about having kids, And I didn't have any of this information except for my grandmother's sister's a type one diabetic. But on my dad's side, there was hypothyroidism and then rheumatoid arthritis on both sides of the family. Oh.

Suzanne (30:29)

And I had no clue.

Scott Benner (30:30)

You don't have RA, though?

Suzanne (30:32)

Like, no. Not yet. Yeah.

Scott Benner (30:34)

It's probably you probably would know by now, I would imagine.

Suzanne (30:36)

I would probably know by now. Yeah. Yeah. Well Yeah. Funny how these things come to light later on.

Scott Benner (30:42)

How about your kids? Are they showing signs of anything?

Suzanne (30:45)

Knock on wood. They're fine. My daughter would like to do the trial net study. I just need her to be home long enough to get the blood work done. My son has no interest.

Suzanne (30:56)

He's younger, and he's still in high school. He has no interest in doing that, but would like for her to do that.

Scott Benner (31:01)

She came to you or you came you went to her?

Suzanne (31:04)

You know, when I was doing one of these studies at the hospital that I go to in the city, they were actually offering it. And she was she was definitely younger then, and she didn't wanna do it. And then, when the whole Addison's thing came up, I brought it up again, and she's like, oh, yeah. I totally wanna do that. So and and, of course, my son is like, no.

Suzanne (31:25)

Okay.

Scott Benner (31:25)

Mhmm. No.

Suzanne (31:27)

But I think she will do it and find out. Yeah. I think it's important to know.

Scott Benner (31:32)

Listen. If it's a thing she wants to know, she should definitely do it. It's easy it's easy enough to accomplish. You know?

Suzanne (31:37)

I consider I have a brother also, and he's totally normal. I kinda consider us medical orphans now. I wish there are you know, so many questions I wish I had asked, but I'm

Scott Benner (31:48)

not Oh, now there's nobody to ask. Time.

Suzanne (31:50)

Yeah. Yeah. Now there's nobody to ask.

Scott Benner (31:51)

Yeah. Yeah. Yeah. Your your brother's totally normal. Is that what you said?

Suzanne (31:55)

Yep. Totally normal. In fact, that was almost a direct quote from one of these, like, forms from, like I think it was, like, Duke University or somewhere like that. You know? Brother's normal.

Scott Benner (32:04)

Brother's normal.

Suzanne (32:06)

Brother's normal.

Scott Benner (32:06)

Girl seems to be an issue.

Suzanne (32:08)

Girl's an issue, but brother's normal.

Scott Benner (32:10)

Right? Through all this. I'm sorry to ask you this. But, like, through your life, like, menstruation, all that, never a problem?

Suzanne (32:15)

Yeah. That's an interesting question. I did have heavy periods. Mhmm. I did have heavy periods.

Correlations vs. Complications

Suzanne (32:21)

My mom had endometriosis, so I, you know, I don't know if there's a connection there, but I I did have some heavy periods. Yeah.

Scott Benner (32:31)

Yeah.

Suzanne (32:31)

And then I would try you know, certain kinds of birth control will help with that also.

Scott Benner (32:36)

Yeah. That's what they I a lot of girls fight against that now. They don't wanna

Suzanne (32:40)

do it. Yeah. Yes.

Scott Benner (32:41)

Arden's been offered, she's like, I I just I didn't like how it felt, and I don't wanna do it. So

Suzanne (32:47)

My daughter fights with that. Yeah. What makes what made you ask that? I'm curious.

Scott Benner (32:51)

I just think that a lot of women in and around autoimmune seem to have heavy periods and trouble Interesting. Menstruating. Like, I don't know enough to say it out loud, but it just a lot of

Suzanne (33:02)

Yeah.

Scott Benner (33:02)

My job is weird, and I hear people, you know, who are in a bucket, basically, and they say a lot of things that are similar. That's the same way I feel about, like, anxiety and people with autoimmune seems to be just, like, rampant. I went through that phase for a couple of years where everybody had, like, a a bipolar uncle. I I was like, this is, like, you know, this is, like how many people are gonna say this to me? You you know what mean?

Suzanne (33:25)

There's a lot of correlations with diabetes that are not considered complications.

Scott Benner (33:30)

You just think it's autoimmune in general and and inflammation and stuff like that.

Suzanne (33:34)

Right. Inflammation. Like, they consider the trigger fingers to to not be a complication, but more of a correlation, was once told by a doctor.

Scott Benner (33:43)

Is that called Dupuytger's something?

Suzanne (33:45)

Yeah. There's so many different things.

Scott Benner (33:47)

Yeah.

Suzanne (33:47)

I thought Dupuytren's contracture was something else, but maybe that is a trigger finger.

Scott Benner (33:52)

I don't know.

Suzanne (33:53)

I know I've had trigger releases. I don't know which fingers anymore. It's hard to tell. The carpal tunnel on both hands, and then I've had also something called Dekker veins.

Scott Benner (34:05)

What's

Suzanne (34:05)

that? And I might be mispronouncing that. So that was when I had my daughter literally picking her up, that that action of holding a baby and picking her up was so painful.

Scott Benner (34:18)

And

Suzanne (34:20)

gone to see an ortho who was like, oh, you'll be fine, you know, once your daughter starts walking. And she was a baby.

Scott Benner (34:28)

Because you won't have to pick her up anymore?

Suzanne (34:30)

Okay. Right. Like, I'm like, I'm picking up this child for a very long time, and I had seen someone this was a local orthopedist, and, I went back to my doctor in the city who had done my surgeries, and he was like, oh, you've got I think it's called Dekroveins, but Dekroveins, something like that. Cannot pronounce it, as I said. And he's like, nope.

Suzanne (34:50)

This is what you have. And I was like, can you fix it? And he's like, well, it's another surgery very similar to carpal tunnel. And I was like, okay. You need to do both hands, like, at once.

Suzanne (35:01)

Like, take care of both hand.

Scott Benner (35:03)

Okay. Did they do that? They usually won't do that.

Suzanne (35:06)

They usually won't do that, and I convinced them to do it.

Scott Benner (35:09)

I just Yeah. I have to tell you. The world confuses the hell out of me sometimes. Hey. It hurts when I pick my kid up.

Scott Benner (35:16)

Don't worry. She'll start walking. What? What? What kind of an answer is that?

Suzanne (35:22)

What a jerk.

Scott Benner (35:23)

What kind of an answer is that?

Suzanne (35:24)

What a jerk. And, oh, I tell everyone locally, like, don't go see him. Like, horrible. Horrible bedside manner. What a jerk.

Suzanne (35:32)

And I end up having, like, bilateral surgery

Scott Benner (35:35)

Okay.

Suzanne (35:36)

To fix it. Yeah. Right? And I did it. I insisted upon it bilateral, like, to do it all at once because I could get help from my parents to come up for, like, six weeks Mhmm.

Suzanne (35:45)

To help me, because I wasn't gonna be able to lift up my child and a husband commuting to the city. So, we were helpless. I I couldn't have someone come up for twelve weeks for two different surgeries. You know? Couldn't even

Scott Benner (35:58)

talk my dentist into doing a cavity on two sides of my mouth at the same time. Oh. He's like, you're gonna bite your tongue off. I'm like, what if I promise not to?

Suzanne (36:05)

Yeah. I don't know if I do that. I have to be honest. That would wake me up.

Scott Benner (36:08)

I'm like, look. I'll just, can I just put something in my mouth for an hour or two and after I leave to make sure I don't bite my tongue off? Like, I'll like, I don't Yeah.

Suzanne (36:16)

What would you I mean yeah. Yeah.

Scott Benner (36:18)

Give me a tongue depressor. I'll I'll do it. But yeah. Like, what he's like, no. You might bite your tongue off.

Scott Benner (36:23)

Like, my god. Like, don't you think if I bit my tongue off, I deserve it? Do you know what I mean? Like, you don't think that's a thing I could focus on for ninety minutes? Hey, Scott.

Scott Benner (36:33)

Don't bite your tongue off. Right. Like, what if I put it on a sticky and held it at my hand? And so but then I gotta go back twice. I think he's just looking for money.

Suzanne (36:42)

Well, it yeah.

Scott Benner (36:43)

He's getting ready to retire.

Suzanne (36:45)

Yeah. You know mean? He'll pay for it.

Scott Benner (36:46)

Probably make a little pile here at the end. I know what's going Yeah. Yeah. I'm just kidding. I'm sure it's it sounds pretty unsafe to numb both sides of a purse, but but I've tried, like, to get them to do it, they've been like, no.

Scott Benner (36:58)

So that's why I was interested they would do both your hands. Because the I mean, how did you wipe? Like, there wasn't there a lot going on there?

Suzanne (37:04)

I mean, my my mom had to help me. I mean, I was like an infant again. Yeah. Yeah.

Scott Benner (37:08)

Lay on your back and pull your legs up?

Suzanne (37:10)

You know? I mean, I think, like, to a certain extent of, you know, I could like, it wasn't that long till I could do that. Yeah. Yeah. But I couldn't wiping's different from picking up a child, Scott.

Suzanne (37:18)

Mhmm. You know? But yeah. Yeah. That's interesting.

Suzanne (37:22)

Funny.

Scott Benner (37:22)

Your life is, is interesting. I appreciate you sharing it with me.

Suzanne (37:26)

Thank you.

Scott Benner (37:27)

Seriously. Yeah. No. This was this was really fun. I mean, odd

Suzanne (37:30)

I'm just living it. I'm just living it, and that's all I can do. Right?

Scott Benner (37:34)

I mean, there doesn't seem to be a lot of other options as far as I can tell.

Suzanne (37:38)

No. You gotta you gotta take what you're given, and and I think you have to make the make the most of it, you know, and make the best of it. It's not perfect. You know? Like, I am not a perfect diabetic right now at all.

Suzanne (37:50)

I can just keep working on and trying.

Scott Benner (37:52)

Yeah.

Suzanne (37:52)

I'm still proud of where my a one c is. I think despite everything, I'm in a good I'm actually in a very good place. Mhmm. I just think I could do better. That's all.

Dinner Pre-Bolusing and Extended Bolus

Scott Benner (38:01)

Well, what would I mean, give me give me two minutes. What what would that look like? What would you have to do?

Suzanne (38:06)

I really suck at pre bolusing at dinnertime.

Scott Benner (38:09)

Okay.

Suzanne (38:10)

That's hard for me. Only because I'm cooking and making dinner and, you know, we don't try to eat healthy and, you know, make dinner and things like that. So it's always it's a little bit of a mess. Right? Like, trying to cook dinner, get dinner on the table.

Suzanne (38:22)

Like, last night, I was trying to be so good and pre bolus, and I'm on the tandem pump. And I I don't know what I did. I I didn't click or press the button to go ahead and make it start the bolus. And I sit down to dinner, and I'm like, ugh. Are you kidding me?

Suzanne (38:39)

Like yeah. Stuff like that will sometimes happen or more often than not. I find dinnertime for some reason is is a mess, not just because of that, but also the just with my insulin absorption and maybe the steroids.

Scott Benner (38:53)

Mhmm.

Suzanne (38:54)

I just struggle. I go higher later at dinner, so I'm trying to do a lot of prolonged bolusing, or stretch that bolus out. I'm pretty good in the morning.

Scott Benner (39:03)

Maybe a magnet on your refrigerator that says pre bolus.

Suzanne (39:06)

I yeah. Gave Something.

Scott Benner (39:08)

I gave all mine away or I would I would give you one.

Suzanne (39:10)

I need something.

Scott Benner (39:11)

Yeah. I I don't know how it's one of those things.

Suzanne (39:13)

Like It's hard.

Scott Benner (39:14)

Yeah. If you don't have somebody helping like, last night, I was cooking last night, and I texted Arden Bowles now. She was, like, eight feet from me. But she was work she was sitting at the table in the kitchen.

Suzanne (39:25)

She'll respond better to a text. Right?

Scott Benner (39:26)

She was studying for a French homework. And so, like, in my mind, I was like, it's ridiculous now that I think back on it. Like, I didn't wanna bother her, but I also she needed a bolus. And so, like, I thought maybe it'll just pop up in front of her, and she'll just, you know, keep moving and go. Instead, she turns out, she looks at me, she goes, I'm right here.

Scott Benner (39:44)

I was like, that's usually my line. That I was like, but, you know, but she's got somebody to, you know, help her remember sometimes. Yeah. And I'll I'll tell you, know it seems simple, but I have spoken to so many people. Remembering the pre bowl as a meal is is really difficult.

Suzanne (40:00)

It's huge.

Scott Benner (40:01)

Yeah. It's

Suzanne (40:01)

huge. But it but it and it makes such difference.

Scott Benner (40:04)

Yeah.

Suzanne (40:04)

Huge impact. Right? And I think sometimes it'll give myself enough insulin at dinner too, but that's a separate issue. But

Scott Benner (40:10)

You're miscounting carbs, or are you trying to

Suzanne (40:13)

No. You know what I think it is, Scott? It's the magic of fat and protein.

Scott Benner (40:17)

Oh, you're getting a rise later. Yeah.

Suzanne (40:18)

Yeah. Yeah. I haven't figured that out yet. That's yeah. I haven't quite mastered that.

Scott Benner (40:23)

There's not a lot

Suzanne (40:23)

of I still find it confusing despite listening to the podcast. I still find it a little complicated. But

Scott Benner (40:29)

Boneless for your carbs, wait forty five minutes, and bolus for the fat.

Suzanne (40:34)

Yeah. Okay. And and if and and still do that on top of my I forget what Tandem calls it. I still sometimes speak Medtronic from years ago. Dual wave.

Suzanne (40:45)

Square wave

Scott Benner (40:45)

bolus. Whatever they used to call

Suzanne (40:47)

it for Medtronic. Extended bolus. That's what it is on Tandem.

Scott Benner (40:50)

Yeah. I mean, you could give yourself an extended bolus on tandem. Just do that instead.

Suzanne (40:54)

I do. But you know what? I still think I need that bump. I think you're absolutely right. I think I need that bump later.

Scott Benner (41:00)

Yeah.

Suzanne (41:00)

I think that's what I'm missing, actually.

Scott Benner (41:02)

There's a little estimator on my website if you wanna look at it. Did you Awesome. Have you tried it?

Suzanne (41:07)

Yeah. I actually

Scott Benner (41:09)

Good. Did it happen?

Suzanne (41:10)

But, again

Scott Benner (41:11)

Then you gotta

Suzanne (41:11)

make very time chaos. Yeah.

Scott Benner (41:15)

Yeah. Well, figure them out ahead of time. That's not that's not crazy. Right? Like, what if you

Suzanne (41:19)

spend crazy.

Scott Benner (41:20)

Fifteen minutes thinking about five meals that, you know, you're gonna have this week and do the carbs and the fat and the protein for them, and then write them down on a piece of paper. Then when you go to eco, this is how I'm gonna bowl this for it. And then maybe you'll just become calm. I don't know. I'm just spitballing.

Suzanne (41:34)

A great idea. You make it yeah. No. That's that's a really simple solution, actually. I mean, just Yeah.

Scott Benner (41:40)

You know what they said when they made those sneakers for Michael Jordan? Just do it. Just do it. Yeah. Yeah.

Suzanne (41:45)

Exactly. Yeah. You'll be Just do it. Yeah. No.

Suzanne (41:47)

That's a good that's good.

Medical Alerts and Pillboxes

Scott Benner (41:48)

By the way, your episode is called fancy pillbox. And Oh.

Suzanne (41:53)

I wish I could show it to you. I actually have two fancy pillboxes too, by the way. Do you really? I do because I carry pills. I have, like, this really nice one that I that I spent way too much money on but I was like, hey, I just got Addison's.

Suzanne (42:09)

Like, I'm getting all this stuff. And so I've got like, you know, these Etsy bags to keep my steroid injection stuff in it and so I have this like super fancy pillbox to go in that bag to carry pills in addition to the injectable. And then I've got my awesome Amazon one that has, like, separated four times a day. Yeah.

Scott Benner (42:30)

You girls are fantastic. I got Addison's. Oh, I can buy a bag.

Suzanne (42:35)

Well, no. It wasn't quite like that. Let me just to

Scott Benner (42:37)

be honest. It was. You were in the doctor's office, like, does this come with something I have to carry? Because I need a No.

Suzanne (42:43)

I promise it wasn't quite like that. But, but I did have to get, like, two customizable bags to say, like, steroid dependent. You know, it's got my husband's number on it. And and now I think I wanna get a seat belt cover. Okay.

Suzanne (42:56)

Because, again, that's my biggest fear is being in a car accident.

Scott Benner (42:59)

Yeah. Yeah. Yeah. Yeah. Well, the seat belt cover

Suzanne (43:02)

Makes sense.

Scott Benner (43:02)

What I hear from EMT though is they don't know if the person driving the car is the person the seat belt cover was put on for.

Suzanne (43:10)

Are you kidding me? Well, then they would look at my wrist. They would look at something.

Scott Benner (43:14)

Hopefully. Yeah. Yeah. Yeah.

Suzanne (43:16)

Hopefully. Hopefully, they're not idiots.

Scott Benner (43:17)

Well, I don't know though, but imagine you're not the you know, people drive you other people's cars. Imagine if you if your husband drives your car, he drives into a wall. Oh. He's unconscious, and they are like, oh, this guy's, you know, got Addison's.

Suzanne (43:32)

It wouldn't be on the seat belt. Say, I'm gonna have to take it with me.

Scott Benner (43:36)

Like, a towel? Forehead.

Suzanne (43:38)

Yeah. Yeah. I'm gonna have

Scott Benner (43:39)

to say, I'm gonna have to

Suzanne (43:40)

carry one more thing now.

Scott Benner (43:41)

Right? Also, I've had EMTs tell me tattoos are not a valuable way to do medical alert.

Suzanne (43:47)

Yeah. I don't want

Scott Benner (43:48)

a or bracelets.

Suzanne (43:50)

Yeah. I don't want a tattoo. Because I'm afraid when when I get older, it's gonna get all wrinkled.

Scott Benner (43:53)

And nasty. Definitely gonna happen. Yeah.

Suzanne (43:56)

Yeah. I don't want a tattoo.

Scott Benner (43:57)

Yeah. Okay. Well, listen. You were able to stay on long enough to get a two part episode.

Suzanne (44:01)

Oh, really?

Scott Benner (44:02)

Yeah. I think so. Time wide. I can't I can't do an hour and a half and a while. Is helpful to someone.

Scott Benner (44:07)

Well, first of all

Suzanne (44:08)

hears it appreciates it.

Scott Benner (44:09)

It's gonna be helpful. You're entertaining. I was fantastic today. You were great. I've been good lately.

Suzanne (44:15)

Always.

Scott Benner (44:15)

Can I just say, I I'll say something that'll sound ridiculous? I've already pompously, told people to stay off of social media, just let me do it, which is not what I meant, but I'm imagining someone's gonna hear it that way. But I listened to an episode of the podcast today, which I don't do all the time called school ties when it came out, like, yesterday or today or something. Okay. And I was listening to it, and I have to tell you, I was excellent.

Suzanne (44:40)

Was Oh, good.

Scott Benner (44:41)

No. No. I, like, listened to it. Was like, this is great.

Suzanne (44:44)

Listen and think you're not?

Scott Benner (44:45)

Yeah. Yeah. Sometimes. Interesting. Yeah. Sometimes I'm tired or I just the wrong like, I'll listen back sometimes and somebody will say something. And as a as the person listening, I'll go, oh, this is the follow-up question, and then that's not the one I ask. And I think, you blew it. Like, that was such a good opportunity to say this, and you didn't do it.

Suzanne (45:03)

That's hindsight. That's hindsight.

Scott Benner (45:05)

Yeah. A little bit. But I I don't know. There's just there's something about that person. That woman and I got along well.

Scott Benner (45:11)

Her attitude and mind meshed well. I thought your attitude and mind meshed well too. Yeah. There's sometimes I feel like I'm

Suzanne (45:16)

fighting There's vibe.

Scott Benner (45:17)

Yeah. Yeah. There's sometimes I think they're great episodes, but there isn't a vibe, and then it feels more interviewy, and this feels more conversational. Yeah. Like, so

Suzanne (45:28)

Which you said it will. You said it would.

Scott Benner (45:29)

Well, yeah. I could tell. Anyway Yeah.

Suzanne (45:32)

Thank you.

Scott Benner (45:32)

You were fantastic. I really do appreciate this. I I wish you nothing but luck. I don't know a ton about Addison's other than what I've heard through, you know, a friend and a couple of people I've seen online. And I I know it's a it's a bit of a slog, so I wish you nothing but the best.

Suzanne (45:47)

And Thank you.

Scott Benner (45:48)

Yeah. You Appreciate Scott. Very welcome. Hold on one second for me. I'll tell you about all those people who I wouldn't name on the podcast.

Suzanne (45:53)

Thanks.

Scott Benner (45:54)

Yep. A huge thanks to today's sponsor, AbleNow. AbleNow offers tax advantaged able accounts for eligible individuals with disabilities. If you or your child lives with diabetes, you may qualify because of ongoing medical needs. With Able Now, you can save for a wide range of disability related expenses without affecting eligibility for certain disability benefits such as Medicaid.

Scott Benner (46:22)

And thanks to recent federal law updates, more people are eligible than ever before. Learn more and check your eligibility at ablenow.com. You spell that ablenow.com. There's links in the show notes and links at juiceboxpodcast.com. I'd like to thank the blood glucose meter that my daughter carries, the Kontoor Next Gen blood glucose meter.

Scott Benner (46:47)

Learn more and get started today at kontoornext.com/juicebox. And don't forget, you may be paying more through your insurance right now for the meter you have than you would pay for the contour next gen in cash. There are links in the show notes of the audio app you're listening in right now and links at juiceboxpodcast.com to Contour and all of the sponsors. Thank you so much for listening. I'll be back very soon with another episode of the juice box podcast.

Scott Benner (47:17)

If you're not already subscribed or following the podcast in your favorite audio app, like Spotify or Apple Podcasts, please do that now. Seriously, just to hit follow or subscribe will really help the show. If you go a little further in Apple Podcasts and set it up so that it downloads all new episodes, I'll be your best friend. And if you leave a five star review, oh, I'll probably send you a Christmas card. Would you like a Christmas card?

Scott Benner (47:42)

If this is your first time listening to the Juice Box podcast and you'd like to hear more, download Apple Podcasts or Spotify, really any audio app at all. Look for the Juice Box podcast and follow or subscribe. We put out new content every day that you'll enjoy. Wanna learn more about your diabetes management? Go to juiceboxpodcast.com up in the menu and look for Bold Beginnings, the diabetes pro tip series, and much more.

Scott Benner (48:07)

This podcast is full of collections and series of information that will help you to live better with insulin. If you're looking for community around type one diabetes, check out the Juice Box podcast private Facebook group. Juice Box podcast, type one diabetes. But everybody is welcome. Type one, type two, gestational, loved ones, it doesn't matter to me.

Scott Benner (48:30)

If you're impacted by diabetes and you're looking for support, comfort, or community, check out Juice Box podcast, type one diabetes on Facebook. Have a podcast? Want it to sound fantastic? Wrongwayrecording.com.

READ FULL TRANSCRIPT