#1821 After Dark: Bigger Fish to Fry

Kelly opens up about raising two teens diagnosed with Type 1 at age six. She discusses international living , multiple miscarriages , alarm fatigue , and managing different sibling personalities.

Companies that Support Juicebox

Simplify Lifewith Omnipod
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TandemControl-IQ+ with AutoBolus
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CommunitySupport Touched By Type 1
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EversenseOne Year One CGM
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Simplify Lifewith Omnipod
Omnipod
DexcomG7 15 Day Sensor
Dexcom
Save 20%Save 20% with offer code: JUICEBOX
Cozy Earth
US MEDGet your Diabetes Supplies
US MED
ContourEasy to Use and Highly Accurate
Contour Next
MiniMedMake everyday a better day
Minimed
TandemControl-IQ+ with AutoBolus
Tandem
CommunitySupport Touched By Type 1
Touched By Type 1
EversenseOne Year One CGM
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Key Takeaways

  • Adverse Childhood Experiences (ACEs): High ACE scores can indicate a higher risk for mental and physical health challenges in adulthood, but awareness and proactive parenting can help break generational cycles of trauma.
  • Autoimmune Links to Trauma: Rachel's son developed POTS and T1D shortly after a severe physical assault and concussion, raising interesting discussions about how acute trauma or head injuries might trigger underlying autoimmune conditions.
  • The Value of a Service Dog: Service dogs can offer incredible dual-support for conditions like PTSD and diabetes, providing a calming physical presence during panic attacks and early low blood sugar alerts before a CGM even registers the drop.
  • Advocating in Schools: Parents must remain vigilant and confidently advocate for their child's health needs and 504 plans at school, especially when administrators or teachers try to push back or disregard the rules.
  • Symptom Clustering: When diagnosing complex or overlapping conditions (like POTS, Hashimoto's, and T1D), looking at clusters of symptoms can help patients and doctors identify the root causes faster than addressing isolated complaints.

Resources Mentioned

FULL EPISODE TRANSCRIPT

Introduction and the After Dark Series

Scott Benner (0:00)

Hello, friends, and welcome back to another episode of the Juice Box podcast.

Rachel (0:15)

My name is Rachel, and I have a 13 year old son who has type one diabetes.

Scott Benner (0:20)

I don't know. I get nervous when I'm on the spot. If you're living with type one diabetes, the After Dark collection from the Juice Box podcast is the only place to hear the stories that no one else talks about. From drugs to depression, self harm, trauma, addiction, and so much more. Go to juiceboxpodcast.com up in the menu and click on after dark. There, you'll see a full list of all of the after dark episodes. If you're looking for community around type one diabetes, check out the Juice Box Podcast private Facebook group. Juice Box Podcast, type one diabetes. But everybody is welcome. Type one, type two, gestational, loved ones, it doesn't matter to me. If you're impacted by diabetes and you're looking for support, comfort, or community, check out Juice Box podcast, type one diabetes on Facebook. Nothing you hear on the Juice Box podcast should be considered advice, medical or otherwise. Always consult a physician before making any changes to your health care plan. This episode of the Juice Box podcast is sponsored by the Omnipod five. And at my link, omnipod.com/juicebox, you can get yourself a free what'd I just say? A free Omnipod five starter kit. Free? Get out of here. Go click on that link. Omnipod.com/juicebox. Check it out. Terms and conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox. Links in the show notes. Links at juiceboxpodcast.com. Today's episode is also sponsored by Dexcom. The Dexcom g seven, the same CGM that my daughter wears. You can learn more and get started today at my link, dexcom.com/juicebox.

Rachel (2:16)

My name is Rachel, and I have a 13 year old son who has type one diabetes.

Scott Benner (2:21)

Why did you just giggle through your name? What was that? I don't know. I get nervous when I'm on the spot. And then you giggle?

Rachel (2:26)

Yeah.

Scott Benner (2:27)

Alright. I can't match that energy. I'm sorry.

Rachel (2:30)

Okay. Sorry for you.

Scott Benner (2:31)

I don't have giggle energy. Although sometimes I do, but takes a lot.

Rachel (2:34)

Go find it.

Scott Benner (2:36)

Maybe you'll find it for me. Challenge accepted, you should have said. You said, alright. I'll get you there. Don't worry. Rachel, why are you nervous?

Rachel (2:45)

I'm always nervous when I talk about myself Really? And my kids.

Scott Benner (2:48)

Yeah. Are you always nervous or just in certain situations?

Rachel (2:52)

No. I think it's all the time.

Scott Benner (2:55)

Do you have ADHD or anxiety?

Rachel (2:58)

I've got bad ADHD. Unmedicated. Makes type one a fun thing to deal with.

Scott Benner (3:03)

Wait. Wait. You're unmedicated?

Rachel (3:05)

Oh, yeah. Unmedicated ADHD all the way.

Scott Benner (3:07)

Oh, wait. Wait. You're medicated, not unmedicated.

Rachel (3:09)

No. Unmedicated. Oh,

Scott Benner (3:10)

I just really

Rachel (3:11)

I don't take ADHD meds. I just wing it.

Scott Benner (3:13)

You're just riding this?

Rachel (3:14)

Yeah.

Scott Benner (3:15)

Like, you're on a bull?

Rachel (3:16)

Yep. With

Scott Benner (3:17)

a rocket up its

Rachel (3:19)

We'll see if we remember what we're talking about today.

Scott Benner (3:22)

We're gonna see if your episode doesn't have a picture of a bull with a rocket up. It's something that might that might be it right there. Well, let's see if we can stay on. I must already have an episode called eight seconds. And if I don't, we're well on our way.

Rachel (3:35)

We're on our way. My type one kiddo, he has ADHD too.

Scott Benner (3:39)

Yeah. It's not uncommon. Yeah. How long do you think you've known about yourself? How old are you?

Rachel (3:45)

I'm 36.

Scott Benner (3:46)

Oh, you're young. Yeah. Do you feel young?

Rachel (3:49)

No. You're young.

Rachel (3:52)

I feel so old.

Scott Benner (3:54)

Are you from the Midwest?

Rachel (3:55)

No. I'm from well, I'm originally from California, but I live in Alabama.

Scott Benner (3:59)

Do you? Yeah. It's a lovely mix in your voice of the two things. I like it. Yeah. I like it. Alright. I just wanna say to Rob while he's editing this, leave all the giggling in. It's fine.

Rachel (4:12)

No. There's gonna be a lot of giggling. I giggle a lot.

Scott Benner (4:15)

Just leave it in. I think it's gonna be delightful.

Rachel (4:17)

Leave it. Yeah. You know what? It's gonna make somebody's day because laughing is contagious. So

Scott Benner (4:22)

I hope so. That's nice.

Rachel (4:23)

Maybe somebody will be listening and they're just feeling really down like I was in the beginning, and they'll hear my giggle. And they'll be

Scott Benner (4:28)

like, oh, it's all gonna be okay. Can I tell you, Rachel, that I not only do I believe that's true, but I've watched it happen, and I've had people tell me the very same thing? Very recently, a woman told me that the first episode of the podcast she landed on was the one where the lady came on to talk about the school nurse mistake that was made on her daughter. And if you haven't seen or heard that one, if you haven't heard that one, you really have to go find it. The school nurse gave the daughter two full syringes of insulin. Oh, I did hear the hell. Yeah. Right? Instead of, like think instead of two units, she gave her 200, if I'm not mistaken. Right? Kid's okay. Nobody panic. But this poor lady finds the podcast. That's the first episode she listens to. And she says, at first, it's like a panic for her, but then she realized that the woman was there. We were talking about it. I was joking about it. The kid was okay. And she she said it made her feel like it was gonna be okay to relax and and be a real person around all this. So I think you're right. So giggle away. Okay, giggles?

Rachel (5:32)

Things happen. You're gonna make mistakes. It's gonna be alright. Everybody's gonna live through it.

Scott Benner (5:36)

Yeah. Try not to give two hundred units of insulin when you mean to give two because that's not one that everybody definitely lives through.

Rachel (5:43)

Oh, yeah. I definitely know. But if you listen to the story, it's fascinating how it all worked out and and how it ended up working out well is is fascinating too.

Family Dynamics and Early Motherhood

Scott Benner (5:52)

But that's neither here nor there. So you're 36. How many kids do you have?

Rachel (5:56)

I've got four kids.

Scott Benner (5:57)

Four kids? Yeah. When did you start? When you were 12?

Rachel (6:01)

19, bro. Twelve's too young.

Scott Benner (6:03)

19. I'm glad you know the loss.

Rachel (6:05)

That's know what though? I'm pretty sure my grandma started when she was 12.

Scott Benner (6:10)

Are you That was, like, the thing back Wait a minute. Are are you what are you being serious? No. How old did you

Rachel (6:16)

You know, because in the old days, people got married when they were, like, really young, and they had kids really, really young, and that was, like, the thing.

Scott Benner (6:22)

Oh, okay. Yeah. You just think she was younger younger. Yeah. Yeah. Yeah. In California?

Rachel (6:27)

No. Oh, no. She grew up in South Dakota.

Scott Benner (6:29)

Okay.

Rachel (6:29)

Most of my family is not originally my family is not originally from, California.

Scott Benner (6:35)

Okay.

Rachel (6:36)

My family is originally from, like, South Dakota and the South.

Scott Benner (6:40)

Oh, well, South Dakota sounds like a place where there's nothing to do but have sex.

Rachel (6:44)

There's nothing to do there

Scott Benner (6:45)

Yeah.

Rachel (6:45)

At all.

Scott Benner (6:46)

But you spend eight, ten minutes looking at one of those animals and you go, okay. That's a

Rachel (6:50)

It's literally the middle of nowhere.

Scott Benner (6:51)

Yeah. Now what do I do? It's cold.

Rachel (6:54)

It is. Oh my gosh. And do you know their speed limits are, like, 80 miles an hour? That's the speed limit.

Scott Benner (6:59)

I would like that.

Rachel (7:00)

That's nice.

Scott Benner (7:01)

I do like a fast driving. Okay. You have four kids. How old are they?

Rachel (7:06)

Yeah. 17, 15, 13, and nine.

Scott Benner (7:11)

17, 15, 13, and nine. And the I don't know which one has diabetes.

Rachel (7:16)

The 13 year old.

Scott Benner (7:17)

13. I was gonna guess that. I should have guessed. I would have looked brilliant if I would have just said what I

Rachel (7:22)

saying. You would have. You would have looked like

Scott Benner (7:23)

he just People would have been

Rachel (7:24)

like psychic.

Scott Benner (7:25)

He might be at work. And then instead, I just didn't say anything because I thought, oh, I've got a one in four chance. I'll be wrong. And then I was gonna be, god damn it. Well, now you don't even believe me that I was gonna pick the right but I was. I was gonna say perfect.

Rachel (7:36)

Time, just go with your gut. It's okay.

Scott Benner (7:37)

How old, was that 13 year old when they were diagnosed?

Rachel (7:41)

He was 12.

Scott Benner (7:42)

That's last year.

Rachel (7:44)

Yeah. We just hit one year, January 11.

Scott Benner (7:48)

Oh, are you okay? How's it going?

Rachel (7:52)

Yeah. It's going. You know? It's, at first, we were dealing with a lot of lows, and then we were dealing with crazy highs, and now we're back to lows. So

Scott Benner (8:00)

you know? Sorry. I think there's something about your It's a roller coaster. I think there's something about your speech and your voice pattern that's gonna make me laugh at things that aren't funny.

Rachel (8:07)

Yes. It's okay. My kids do it too.

Scott Benner (8:10)

Laugh at you?

Rachel (8:12)

Yeah. Everything. Everything. Like, if if somebody's crying, they laugh. They don't know. Or, you know, somebody died, they're just giggling, they don't know how to be serious.

Scott Benner (8:21)

That's fairly inappropriate. I I mean, in the wrong setting, don't you think?

Rachel (8:26)

I mean, I hope they laugh at my funeral because I don't want them crying. I

Scott Benner (8:30)

don't know. Do you feel like you're a decent parent or maybe not?

Rachel (8:34)

I think I'm a rock star given everything that we've been going through.

Scott Benner (8:38)

The situation. Is there a boy living there with you and those four kids? Oh, no. Uh-uh. You let him go?

Rachel (8:44)

Oh, long time.

Scott Benner (8:46)

Was he let go for poor let go for poor performance? What happened?

Rachel (8:49)

You know, it just didn't things just didn't work out. You It wasn't a good situation.

Scott Benner (8:55)

You're telling me when you crank out four kids in four years at the age of 19, things get dicey?

Rachel (9:03)

Well, you know, sometimes you're just not somebody's person. So I guess

Scott Benner (9:08)

don't notice that when they're on top of you making babies?

Rachel (9:12)

Listen. Narcissists are really good at putting on a show.

Scott Benner (9:15)

Are you talking about you or him?

Rachel (9:17)

Him. Oh, okay. No. So, actually, my oldest I was actually when I was

Scott Benner (9:25)

Jesus, Rachel. Maybe a preface or something. I'm so sorry to know that. Why? Now I feel like I can't joke with you and that everything I've said is wrong.

Rachel (9:32)

Told you I'm not easily offended and you know what? I'm not even ashamed of my life because things that happen happen and it made me who I am. But

Scott Benner (9:39)

I don't want

Rachel (9:39)

you oldest.

Scott Benner (9:40)

Oh. Don't I kept the baby. I oh. Oh, okay. I get I don't want you to I I'm not. Alright. Let me start over. You took me out of left field. Hold on a second. This has happened once before in the twelve years that I've recorded this podcast. And the and the last time, I did not pivot quickly enough. And so this time, I am. And if you wanna go look for that one, you can't find it because it is one of the it is one of the three episodes that never aired because at the end of it, the person I spoke to and I both went, you wanna delete that? And we both went, yeah. Let's do that. Because we were having this fun, laughy conversation that suddenly took a weird like, not a weird turn, but like a stark turn. Mhmm. I wasn't I don't know what happened. It's hard to know, like, you're vibing and you're talking and everything and, like, I just didn't pivot quickly enough And it just felt strange. So this is why I put my foot in the ground when you said that.

Rachel (10:32)

It's okay because I can pivot us too if you can't.

Scott Benner (10:34)

So No. Okay.

Rachel (10:35)

Good. So my I have my oldest, and then my ex husband that I was married to for seven years.

Scott Benner (10:42)

Mhmm.

Rachel (10:43)

Together for nine, is my boy's dad. And then my little girl, actually had after I got divorced, and, her dad actually had passed away in 2023.

Scott Benner (10:54)

Can I ask questions about the thing you just said, or do you prefer if I

Rachel (10:58)

No? Absolutely. Ask all the questions. I'm an open book because you know what? Something I say might help somebody, and you never know.

Scott Benner (11:04)

Well, that's what I'm hoping. What prompts you to keep the baby after I don't know what to call it. The event, we'll call it.

Rachel (11:11)

The event. Yeah. Okay.

Scott Benner (11:12)

We'll call it the event. That's fine.

Rachel (11:13)

I actually wasn't sure at first, and then I just prayed a lot about it, and I just took some time to really think instead of just jumping to a decision. And, you know, it's not a baby's fault how they get here. And who am I to say that she wasn't supposed to be here even though it happened in a bad way? Like, what if she changes the world? What if she creates a cure for something? What if she you know what I mean? Like

Scott Benner (11:37)

Mhmm. And she's super talented.

Rachel (11:41)

Super talented. She sings really well. She's in marching band. Super smart. Like, reading out of college level at in the fourth grade. She's just amazing.

Scott Benner (11:50)

So glad you didn't say she got fired from her job at the Piggly Wiggly because she couldn't run the deli counter, and I would have been like, oh, gosh.

Rachel (11:57)

No. So she actually hasn't had a job yet either. So she keeps asking me to get a job, and I'm just like, I want you to focus on school. Mhmm. School's important. Marching band, choir, all the things you're doing is what's gonna get you into college. And she wants to go to Juilliard, and so I said, you need to focus. You need to focus on your career path, focus on school, focus on getting your portfolio together. Like, there's more important things than having a job.

Scott Benner (12:19)

Good for you. I take it back. You're a good parent. Now

Rachel (12:21)

Thanks.

Scott Benner (12:23)

Did you know the assailant?

Rachel (12:25)

Not, like, personally. Like, I had met him a couple of times before, and then we were at a party and things happened.

Scott Benner (12:32)

Did that person, go to a prison for this?

Rachel (12:35)

No. I actually never told anybody until, oh, I think she was about four months old. And my mom kept telling me, like, she had gotten me a, like, spa treatment thing for my first Mother's Day. Mhmm. And she's like, why don't you go and do that? Like, you haven't even used it. Get away and let me watch the video and stuff. And then I finally broke down and told her, and then I said, it's not because I think you're gonna hurt her, but I'm just so afraid. And then

Scott Benner (12:58)

Oh gosh.

Rachel (12:59)

You know, things spiraled from there.

Processing Trauma and Being Open

Scott Benner (13:01)

How did you deal well, I mean, I have a lot of questions. But first of all, personally, how do you make yourself, I mean, right with all that or right as you can be? You can manage diabetes confidently with the powerfully simple Dexcom g seven. Dexcom.com/juicebox. The Dexcom g seven is the CGM that my daughter is wearing. The g seven is a simple CGM system that delivers real time glucose numbers to your smartphone or smartwatch. The g seven is made for all types of diabetes, type one and type two, but also people experiencing gestational diabetes. The Dexcom g seven can help you spend more time in range, which is proven to lower a one c. The more time you spend in range, the better and healthier you feel. And with the Dexcom Clarity app, you can track your glucose trends, and the app will also provide you with a projected a one c in as little as two weeks. If you're looking for clarity around your diabetes, you're looking for Dexcom. Dexcom.com/juicebox. When you use my link, you're supporting the podcast. Dexcom.com/juicebox. Head over there now. Today's episode is brought to you by Omnipod. Did you know that the majority of Omnipod five users pay less than $30 per month at the pharmacy? That's less than $1 a day for tube free automated insulin delivery. And a third of Omnipod five users pay $0 per month. You heard that right. 0. That's less than your daily coffee for all of the benefits of tubeless, waterproof, automated insulin delivery. My daughter has been wearing Omnipod every day since she was four years old, and she's about to be 21. My family relies on Omnipod, and I think you'll love it. And you can try it for free right now by requesting your free starter kit today at my link, omnipod.com/juicebox. Omnipod has been an advertiser for a decade. But even if they weren't, I would tell you proudly, my daughter wears an Omnipod. Omnipod.com/juicebox. Terms and conditions apply. Eligibility may vary. Why don't you get yourself that free starter kit? Full terms and conditions can be found at omnipod.com/juicebox.

Rachel (15:17)

You just have to do a lot of work, therapy And, you know, with my kids, I keep the line of communication open always. Always. You can it doesn't matter what anybody tells you. It doesn't matter what you did. Like, you you're never gonna tell me something that's gonna make me not love you. And even if somebody says they're gonna hurt hurt me, like, they have to get through me. So and they're not gonna get through me.

Scott Benner (15:41)

Does she know?

Rachel (15:43)

I actually just told her.

Scott Benner (15:45)

Yeah. What goes into that decision?

Rachel (15:47)

Well, for a long time, I wasn't gonna tell her. And then she said, you know, I really wanna know who my dad is and, like, why he's not around and all the things. And so I told her, you know, as nicely as possible. And I told her this is why I'm so crazy about Internet safety and physical safety and, you know, don't put yourself in situations that could lead to something dangerous. Like, this is why I'm so crazy about people not staying the night. You're not staying the night at other places. Like, this is why all these decisions

Scott Benner (16:22)

I mean, they all feel like the time. Yeah. Yeah.

Rachel (16:24)

Yeah. Like, this is why.

Scott Benner (16:26)

Have you ever seen this person again? Do you see him?

Rachel (16:28)

Uh-uh. Nope. No. It's the last I knew he was in California.

Scott Benner (16:33)

God. Oh, I'm so sorry. I mean, it's a long time ago, but still.

Rachel (16:37)

Yeah. You know, I'm but like, you know, like I said, it it made me it's one of the events that made me who I am today, and I'm stronger that I got through it. And I have an amazing kid from it, and so and she looks just like me. I copy and pasted her.

Scott Benner (16:50)

That's lovely. You're that's that's always maybe one of the somehow saddest, nicest stories I've heard in a while. Like, after all I've been through. And, like, sometimes people say that and then the stuff they talk about, I'm like, that's really not a lot. But you have a different pathway, different perspective. Yeah. Yeah. Wow. Yeah.

Rachel (17:07)

I have a lot. I you know, my marriage was a not a good situation and very emotionally, verbally, financially abusive, and, you know, and then my little girl's dad passed away. So I'm parenting her all by myself, and his family's not involved. So

Scott Benner (17:24)

Wait. Hold on. So you have four kids? Yeah. The one the oldest is from what we just talked about. Is this the second the girl you just brought up?

Rachel (17:34)

No. My last is the little girl.

Scott Benner (17:35)

Okay. So you have like, every word I wanna use sounds, like, not enough. But your oldest is from the incident, and then your middle to her from your marriage

Rachel (17:45)

Yes.

Scott Benner (17:46)

To to the seven year marriage

Rachel (17:48)

Yes.

Scott Benner (17:48)

That you got rid of that guy Yeah. For for the reasons you just said. The youngest is from a different guy?

Rachel (17:54)

Yes. That so I he was my best friend. My youngest one's dad was my best friend.

Scott Benner (18:00)

And he's passed away recently? And he passed away

Rachel (18:02)

in 2023.

Scott Benner (18:04)

My gosh. Yeah. My I'm so sorry. Wow.

Rachel (18:08)

So it's been a lot of things, but you know what? We we've all gotten through it, and we're all stronger for it. So

Scott Benner (18:13)

Yeah. Well, that that's why they made that song. Yeah. I mean, this song is not what doesn't kill you makes you weaker. Like, that's not that's not the song. If it was, then, you know, what it's

Rachel (18:26)

song Then we got diabetes diagnosis.

Assault, Concussion, and a Type 1 Diagnosis

Scott Benner (18:29)

What else is before we get to the diabetes, what else is happening? Is there are there other things, or are we gonna get to the diabetes as the last thing?

Rachel (18:37)

No. I mean, I don't think that there's much else. Like, oh, well, we have a service dog. Well, she's a puppy, but she's trained to be our service dog.

Scott Benner (18:44)

That's fun.

Rachel (18:45)

So that's really exhausting. No. It's fun now that she's a little older, but when she was when we first got her, it was crazy. This dog was like a tornado.

Scott Benner (18:56)

What leads to that? Like, the the kid gets the diabetes and you somebody says service dog and you think yes and then dive in too quickly?

Rachel (19:05)

My mom had a service dog

Scott Benner (19:07)

For

Rachel (19:07)

for PTSD and hearing.

Scott Benner (19:09)

Okay.

Rachel (19:10)

And then I also had a service dog for PTSD and hearing. And so I don't know. It's it's so it's crazy how it all kinda happened, though, because part of my service dog's story leads into, like, diabetes. You know what I mean?

Scott Benner (19:27)

Start there. I'm impressed that the service dog has a story. I don't have a story. Yeah. What what's your go go ahead.

Rachel (19:33)

Okay. So we had our we had well, we had the dog. We I say we because my 15 year old son bonded with our with the dog so well that if she had to save one of us in a fire, it would be him and not me. Like, all the rest of us would die. He'd be the sole survivor, him and the dog.

Scott Benner (19:49)

I can't believe that's the example you brought up. We just talked about this in my house last night about who you'd go grab in a fire.

Rachel (19:55)

Yeah. No. I'm telling you. She would she would get him, and that would be it. Like, we would all perish. I found out that she had cancer. She had mammary gland cancer

Scott Benner (20:06)

Mhmm.

Rachel (20:06)

In April '23 is when I found out about it. In October on the October 24, I let my dog out to go to the bathroom, and she was taking a really long time. So I walked down there to find her, and she's just, like, laying in the grass. And I'm like, okay. Come on. Let's blow in the house. And she could not get up. And when she did get up, she was stumbling a lot. And I'm, like, freaking out. I'm hollering for my oldest kid to come out and help me pick her up and bring her in the house. And so we pick her up, we bring her in the house, and I made a floor, like, bed on the floor Mhmm. So I could sleep next to her and you know, away from all the kids. So just in case she didn't wake up in the morning, you know, I could handle it before the kids got Yeah. And so me and my daughter lay her down right next to the bed I made on the floor, and she stayed in that spot all night long. She did not move. When I fell asleep and woke back up, she was still in the exact same spot. So I was like, okay. This is this is not gonna end well today. So I wake up, and I take her to the vet. And we ended up putting well, I picked up my oldest son before we went to the vet. But I picked up my oldest son. We went to the vet. We ended up putting her to sleep. I went home and got in the shower, you know, because I just had

Scott Benner (21:19)

A long Yeah.

Rachel (21:20)

Tears and dog hair, and I was on the floor at the vet's office, like you know? Yeah. And while we're putting my dog to sleep. And five minutes after we get home and I get in the shower, my oldest son says, hey. You have a missed call from the school. Hey. You have another missed call. And I'm like, well, answer it. So he answers my phone. He said, mom, it's the ambulance. They have to talk to you. And I'm like, what? So I hop out of the shower, and I'm like, hello? And they said, hey. Your son was assaulted at school. He was knocked unconscious, and we are taking him to the hospital. I said, okay. So I'm you know, I don't know the whole story. I don't know what's happening. I just know that my kid is on his way to the hospital, and my brain says, do I go to the hospital, or do I go to the school and beat up the parent? Like you know what I mean? Like, what do I do?

Scott Benner (22:05)

I mean, you're you're at the hospital. I'm assuming.

Rachel (22:07)

I did. I went to the hospital because, you know, my kid is more important than any revenge or any anger or whatever. So I meet him at the hospital. He want they roll him in, and he just looked so out of it. Like, he was just staring off into space, looking around. It was very sad. It was probably the worst thing I'd seen up until that point. He was out of school for a little while. You know? And then for almost a whole year after that now this happened the assault happened 10/25/2020 At the 2024, he was still having what we thought were concussion symptoms. So his doctor finally sent him to the concussion clinic here in Alabama, and they diagnosed him with POTS. They diagnosed him with post concussion syndrome, and then they wanted him to go get some labs done. And they were looking for something, I don't know, something in his blood that had to do with the concussion. Right? They weren't looking for really looking for, like, blood sugar or anything like that. Mhmm. That was on a Thursday when we went to the clinic. On Saturday, I got a call, and I was like I looked at my phone. I'm like, well, I don't know anybody in this town. And so I didn't answer it the first time. And so I sent it to voice mail, and it immediately called me right back. And so I'm like, thinky thingy. I'm like, oh, that's the town the doctor's in. So I answer it. She said, hey. You know, Grayson's test results came back, and you need to get him to the emergency room to have them recheck his blood sugar. It could be a lab error, but, you know, the endocrinologists here at the hospital think that it can't wait till Monday, so you need to go. Probably about ten minutes before that phone call, me and my three youngest kids were outside building a snowman. Like, life was great. We were having so much fun. I mean, I even have the last picture we took before we got to the hospital and got a diabetes diagnosis, but, like, it was just it was such a fun day. And then we got to the hospital, and they took his blood sugar. And it was four forty eight, and they were like, yeah. He's definitely gonna stay here. And then that's how we got our diagnosis.

Scott Benner (24:12)

My gosh. That's a that's a whirlwind.

Rachel (24:15)

Yeah. And then I started thinking about it, you know, like, a lot of stuff was happening. Obviously, it was a lot of, like, education and stuff. And then I started thinking about the fact that my son is 12 now, but soon he's gonna be 13. And then soon he's gonna be 16, and he's gonna wanna drive. And when he drives, he's gonna wanna go places with his friends by himself, obviously. He's not gonna want his mother toting along around with him all the time. And then shortly after he turns 16 and wants to drive, he's gonna go to high school or he's gonna go to college because he's gonna graduate high school. And I can't go to college with him. Like, you know what I mean? And so my brain just started spiraling about this whole future that he has that hasn't even happened yet.

Scott Benner (24:54)

Right. No. No. And how you're trying to get ready for it somehow.

Rachel (24:58)

Yeah. And so

Scott Benner (24:59)

Before you even know what you're doing.

Rachel (25:00)

Dog. Like, maybe I'll look into that.

Scott Benner (25:02)

Okay. You're like, you know what'll help? A four legged dog.

Rachel (25:07)

Yes. That will always be with him, and we'll have his back. You know what

Scott Benner (25:11)

I mean?

Rachel (25:11)

And then it's actually funny because I had mentioned to the endocrinologist that we use. I had mentioned to the diabetic educator there that I was thinking about maybe seeing about a service dog, and she put me in contact with another parent in my same area that has a service dog.

The Service Dog and Early Alerts

Scott Benner (25:29)

I'm sorry. Do you still have your dog? Are there three like, when you get together with your mom, are there three service dogs there?

Rachel (25:35)

There's well, my mom is in California, so we don't get together really.

Scott Benner (25:37)

But Oh, okay. Okay. Yeah. But do you still have one?

Rachel (25:42)

No. No. She I put her to sleep the day that my son was assaulted. Remember?

Scott Benner (25:46)

I put her to sleep with the That was the oh my gosh. Okay. I thought the service dog was a thing in the past. That was the dog.

Rachel (25:53)

And That was the dog. And then, you know, everything's filed after that.

Scott Benner (25:57)

So you haven't had your dog for the last year or so? Uh-uh. And has that been an issue for you?

Rachel (26:03)

No. It's been alright.

Scott Benner (26:05)

So you didn't need the service dog?

Rachel (26:07)

No. Well, the thing is is that I had to learn how to to just do things, you know, like, when I'm having an episode and I'm, you know, freaking out and I don't realize where I'm at, like, I just have learned to get through it. Like, just to sit down and breathe for a minute and tell myself, like, hey. You know, it's okay. You're not in the past. The past is not now.

Scott Benner (26:28)

So you know my next question.

Rachel (26:29)

I'm getting another one, but I just couldn't. The pain of losing her was so

Scott Benner (26:34)

I imagine. Yeah. But do You

Rachel (26:36)

know what I mean?

Scott Benner (26:36)

You know my next question, though. Right? You had a service dog. You don't have it anymore. You don't feel like you need it. You got your son a service dog.

Rachel (26:44)

Well, so I actually decided to get him one instead of myself.

Scott Benner (26:50)

Oh, so it was the decision. Like, you could only have one.

Rachel (26:53)

I see. I had to I had to make the decision of, like obviously, you know, service dogs can be expensive, and the training can be expensive and everything. And so I I care about my kids before myself, so I will suffer severely for my children not to suffer.

Scott Benner (27:12)

Are you suffering?

Rachel (27:13)

I mean, every day is a struggle. Like, you know, I I told you I'm an anxious person. I'm anxious all the time.

Scott Benner (27:18)

How does a dog help you with PTSD?

Rachel (27:22)

So there's you know, they can just kinda sense when you're starting to get into that moment of, like, panic, and she would come over and she would just lay her head down on me. And it's almost like she would kind of put her body onto me, and it was like I felt almost like if you're getting a hug.

Scott Benner (27:40)

Mhmm.

Rachel (27:40)

You know what I mean? And so she it's just like she brings a calming emotion to a bad situation, and she could always tell when you know, even even other people, she could tell when anybody was upset. And she, you know, she wouldn't leave you alone until she knew that you were better.

Scott Benner (27:56)

The way you describe yourself, ADHD, anxiety, etcetera, would you have described yourself that way prior to being 18?

Rachel (28:07)

I know I had ADHD before that, but no. I really didn't pay no mind to any of it. Like, I know my mom had done, like, some testing for me when I was a kid, and, you know, she got some diagnoses for me. But she was like, I'm not gonna put my kid on medicine. I'm not gonna put my make my kid a zombie. Like, she was all against medicine. So for the longest time, like, that was kinda my outlook too on

Scott Benner (28:31)

a I'm wondering how much of your I mean, the PTSD is obviously from, you know, what we talked about earlier. Correct? Uh-huh. Yeah. Okay.

Rachel (28:38)

That and my marriage.

Scott Benner (28:39)

The marriage. It's bad. How do you financially abuse somebody? You said that during your

Rachel (28:44)

life. Abuse. Yeah. So okay. So that's the thing. When I was in my marriage, I didn't think that there was any real abuse. Like you know what I mean? Like, there were sometimes where, like, a beer bottle was thrown at me or, you know, things like it it was a little bit physical, not a lot, but, like, one or two times it was physical. But I was like, no. No. It's not. It's not domestic violence. It's not that. When I had got divorced, my mom said, can you just go to one domestic violence counseling group? And I said, no. No. And she said, just one, and I'll never bug you again if you say you don't belong there. I said, okay. So I went. And when the women that were there started talking about their stories is really when it clicked for me that, oh my gosh. I have been abused for years. Years. And that just because it's not physical abuse doesn't make it any better. And, actually, a lot of the women in that room said that the physical abuse was the easy part because bruises heal, and your brain is hard to heal.

Scott Benner (29:43)

What's an exam so of throwing your beer bottles, an example So physical. Yeah. And demeaning

Rachel (29:50)

But so, like, financial. So, like, I didn't have a job. I was a stay at home mom for most of the time. I got a job only he would let me have a job before, like, the Christmas season for holidays, and then he would go he made all the money. So he would go and take money out of the bank account and only leave in there a certain amount of money that I would need. Like and I all I could never access any of the money without permission. Like, I had to ask for money.

Scott Benner (30:15)

Where did the rest of the money go? Just smart investments, building a future?

Rachel (30:19)

Nope. To his affair.

Scott Benner (30:21)

Oh, awesome. Yep. Long do you think that was going on?

Rachel (30:24)

It was at least a year that I know of because I remember the day I found out about her. Me and him were with our kids that we had and the three kids. We went with a friend and their kid to a fish boil or a crawfish boil. And he went to the bathroom, and his phone went off. And I had just picked it up to look, and it was another woman. And I read their messages, and they were talking about, you know, all our marital problems, blah blah blah. And I remember we about it that day, and he's like,

Scott Benner (30:50)

well, she's just a friend, and I'm just venting to

Rachel (30:52)

my friend. It's no different than you. I said, no. It is different because that is a friend of opposite sex. You don't talk about your marriage problems with your friends of opposite sex. I'm sorry. You just don't. It's not appropriate. You know what I mean?

Scott Benner (31:02)

No. I'm yeah. Listen. I'm with you. So But he was cheating at that point, you believe?

Rachel (31:07)

Oh, yeah. Oh, yeah. There's no doubt in my mind. Because also somebody that worked with them so they worked together. And then somebody that worked with them actually ended up delivering a pizza to me one day after me and him had separated. And he said, hey. You know, such and such such and such is actually pregnant by by your husband. And I was like, what?

Scott Benner (31:28)

Good time.

Rachel (31:28)

He was like, oh, yeah. They've been dating for a long time. And I was like, are you kidding me? He said, no. They're always together holding hands and stuff in the workroom. Like I'm like, okay. So all of my thoughts around that were correct.

Scott Benner (31:39)

At the fish fry, when you pick up the phone you can be honest with me. Yeah. Before you pick up the phone, are you already wondering and you're thinking, me catch him here? Or were you literally just like, oh, your phone's

Rachel (31:50)

going off? Literally just was like, hey. Your hey. His phone's going off. Let me check it because he was at, you know, the bathroom.

Scott Benner (31:55)

Up until that moment, you thought you were Up

Rachel (31:57)

until that moment.

Scott Benner (31:58)

You were in a regular old relationship where just beer bottles got thrown at you and you weren't allowed to have money.

Rachel (32:03)

Yeah. So, you know, there had something in the beginning. Like, in the very beginning of the relationship, there was something that was kind of weird, and then I decided to ignore it, and we talked about it, and that was it. You know what I mean? And so I really thought that that was just it.

Scott Benner (32:17)

Oh, you sniffed it out once. And then Mhmm. And then

Rachel (32:21)

And then I ignored it for what I, you know, wanted Mhmm. The life life that I thought was gonna be.

Scott Benner (32:28)

Gotcha. My

Rachel (32:29)

goodness. So

Scott Benner (32:30)

I can't keep apologizing to you because it's weird. But, like, sorry. You went through that. Yeah. Yeah.

Rachel (32:35)

Don't be sorry. I like I said, it it made me who I am. It made me strong enough to help my son through his stuff, and, you know, it's we're getting through it.

Scott Benner (32:43)

So My goodness.

Rachel (32:45)

But, yeah, that's kind of, like, the whole process that kinda led up to to me getting him a service dog.

Scott Benner (32:52)

Gotcha. I understand. You did a good job

Rachel (32:55)

as well.

Scott Benner (32:55)

The dog

Rachel (32:56)

did? Just joined yeah. He just joined the baseball with the high school that we're

Scott Benner (33:00)

Wait. The dog did or your son did? Oh, okay. Because I thought it gonna be one of those Disney movies where the dog was playing left field or something like that. So cute. No. No. Okay. I told

Rachel (33:09)

them they need to change their mascot from an eagle to a golden retriever, and then she could just be their mascot.

Scott Benner (33:14)

And they were like, this lady's got a lot of ideas. We gotta get her out of here. Yeah. Yeah.

Rachel (33:19)

But no. So she actually she has been fan phenomenal through, you know, his first sports experience with diabetes because, like, last night, for example, I brought her with me. Me and her were sitting in the car. He was out on the field, and she was pawing at me and, like, try literally trying to get into my lap from the back seat. And I'm like, ugh. What? What is it? And then she, like that's kind of her phrase. Like, what is it? And she was like, oh, yeah. Now I can really tell you what's going on.

Scott Benner (33:47)

Wow.

Rachel (33:47)

And so

Scott Benner (33:48)

He's low or high at that point?

Rachel (33:49)

Low. Yeah. So she's telling me he's low. So I I check his Dexcom. His Dexcom says he's 90 something. And I'm like, okay. Well, let's just check anyway. So we do a finger poke, and it says 80. And so I look at her, and I'm like, okay. We'll watch it because that's still not what Dexcom says. Like, that's still lower than Dexcom. And so we go sit back in the car, and maybe five minutes later, she's like, lady, I'm telling you something ain't right.

Scott Benner (34:15)

And I'm like the kid. Yeah. She's like, it's only

Rachel (34:18)

been five minutes. Like, chill out. You know?

Scott Benner (34:20)

And She's reading the fall of the blood sugar, you think?

Rachel (34:23)

Yeah. And she's like, no. Something is wrong. I went and checked him again. Like I said, within five minutes, he was down at 66.

Scott Benner (34:30)

Oh, pretty cool.

Rachel (34:32)

And then by that time, Dexcom had caught up a little bit and said, you know, 78 arrow down. And I'm like, okay, Dexcom. Like, this could have been really bad if he kept, you know, being out there running bases and stuff, and he's at 66. I don't even wanna know what would have happened by the time Dexcom caught up.

Scott Benner (34:48)

Can I ask you prior to the it's a practice? Right? It's early in the year. Yeah. And you're in the South, though, so you could start playing outside. But prior to the practice, did he eat something? Did he have a meal?

Rachel (34:58)

Prior to this practice, he actually was low at school, and the nurse gave him some carbs and some protein and stuff like that. And then before we went to practice, I gave him a protein bar and, you know, some stuff to kinda just keep him going.

Scott Benner (35:15)

But did you bolus for it?

Rachel (35:17)

No. No. Told him I said, don't take any insulin because you're you know? His doctor wants him to be one hundred at least to be able to exercise. And how many carbs is in? I'm that's sitting right here, the rapper is, because he didn't even finish the whole bar. Let's see. He this one is 47 carbs, and it's like a it almost is like the size of two protein bars in one, but 49 carbs. And I said, don't don't take no insulin for it. It's fine because you're about to go to practice.

Scott Benner (35:43)

And he got low anyway.

Rachel (35:44)

Yeah. Even and it happened twice.

Scott Benner (35:46)

How do we get insulin? MDI?

Rachel (35:49)

So he is on a a Omnipod now.

Scott Benner (35:54)

A five? Yeah. Interesting. How long?

Rachel (35:56)

Yeah. He's on Omnipod five. We started in August past year of 2025.

Scott Benner (36:03)

Do you adjust targets for activity? Do you

Rachel (36:07)

Yeah. So while we go to, like we'll put him into I always call it sports mode, and he laughs

Scott Benner (36:12)

at me.

Rachel (36:13)

Yeah.

Scott Benner (36:13)

Yeah. I think your car has sports mode. It's when it drives, like, a it shifts a little sooner, and it's a little faster. You know what mean?

Rachel (36:19)

Well, Oh, no. Like, the other day, I would I usually, I'll check him before we get there, and I'll you know, I told him, said, when you go see the nurse for your last school check, switch yourself into sports mode. And he's like, mom, what do you mean sports mode? And I'm like, you know, like, when you put your Crocs in sports mode? And he's like, I don't know

Scott Benner (36:35)

what you're talking about. But, usually, I'll make

Rachel (36:37)

sure he did it. But this time, I didn't. So I ran onto the field, and I was like, hey, Grayson. Sports mode. And he's like, what?

Scott Benner (36:44)

And he's like, oh, I got it. Exercise mode. I gotta get out of here. I got yeah. Yeah.

Rachel (36:49)

Yeah. He's like, I don't know what you're saying. I was like, Omnipod.

Scott Benner (36:52)

Mom, I wanna go away to college. I don't know if I've mentioned that before, but I just decided, what I I'm pretty far. I'd like to go far. Can I go far, please?

Rachel (37:01)

And then said I Omnipod, and he was like, oh, I know what you mean.

Scott Benner (37:03)

Okay. So when he's diagnosed this a year ago when he's diagnosed a year ago, he's not he's not really diabetes wise, I'm guessing they caught it kinda quickly because they were looking at the other stuff from the head injury.

Rachel (37:16)

They caught it pretty early because they were looking for something else and happened to stumble upon it.

Symptom Clustering and the Root Cause

Scott Benner (37:21)

Do you think he has POTS or do you think he had post concussion stuff?

Rachel (37:25)

Oh, no. He definitely has POTS because they did the test in the room. Like so they'll have you lay down. They'll take your vitals, and then they'll have you like, they have you lay down for quite a while so that your body can just kinda relax. Right? So they can get your, like, starting vitals. Mhmm. And then after that, they'll have you stand for ten minutes. Just in one spot, just standing. No exercising. No walking around. Nothing. Just standing.

Scott Benner (37:48)

Sounds exhausting. Sorry.

Rachel (37:50)

Yeah. It's very tiring.

Scott Benner (37:53)

Iron my iron's just a little low right now. When you said that, I was like, oh, ten minutes. Not today. Right. No. Thank you.

Rachel (37:57)

Not today. No. Not for me. So then they'll take your vitals again. And if your heart rate goes up by 30 points or higher, that is an official diagnosis for POTS. Upper or down. It can actually go down too. So, like, I actually have three children who have POTS of my four children.

Scott Benner (38:15)

Okay.

Rachel (38:16)

And my oldest, her heart rate goes down.

Scott Benner (38:19)

Her heart rate goes down. But does she have a POTS distinction?

Rachel (38:23)

So she her official diagnosis because there's a thing around POTS is that doctors don't wanna diagnose it because it's you only get to that diagnosis after ruling everything else out. Right?

Scott Benner (38:33)

And

Rachel (38:34)

so and then there was that whole, like, oh, COVID conspiracy, COVID, you know, causes POTS, but it is really this is not the truth. You know? COVID can trigger your autoimmune gene with yes. Which can happen. But then once that is triggered, you can get any plethora of autoimmune diseases. Like, it that's not directly, you know what I mean, related. Mhmm. But so doctors, you know, they it's hard to find. I actually had a doctor tell me they described POTS. They said this she's gonna have these episodes her whole life. Just make sure she has good salt and water levels. You know? So she he described it. He told me how to to treat it, and then he's like, ugh, POTS is a dirty word. Because my mom was with me. She's like, oh, so like POTS? And he's like, POTS is a dirty word. And I'm just like, okay. Whatever. So my oldest daughter's official diagnosis is orthostatic intolerance, which is just another name for pots.

Scott Benner (39:23)

Okay. Well, you know, sometimes the pots and the pans are the last thing they get washed. Everybody runs out of steam, and they just sit in there. Right. People and people do that. They go, I'm gonna let that soak a little bit.

Rachel (39:32)

Just leave it. It's gonna be alright.

Scott Benner (39:34)

I'm gonna let that soak as code for I'm done with the dishes now. Thank you. Also, you know there's actually a a medical issue called pans too?

Rachel (39:42)

Yes. I know. That that's crazy. I'm just like, okay. Well, I have POTS and PANS then, so let's go.

Scott Benner (39:47)

Clank clank, baby. Okay. So wow. Okay. The POTS thing's in it is interesting. It's it's right up there with the other stuff that's difficult to to, you know To diagnose. To diagnose. Right. Yeah. For sure. I don't know why the word diagnose wouldn't come into my mouth just then, but that

Rachel (40:03)

was ridiculous. Crazy is I have a niece with it too. So autoimmune obviously runs in our family, but nobody else in my family has diabetes.

Scott Benner (40:10)

That was gonna be my next question. On your side of the family, what other autoimmune stuff are we seeing?

Rachel (40:14)

We're seeing pots. We're seeing I mean, he has diabetes. I don't really know what else. My family has a lot of crap.

Scott Benner (40:21)

Let's go through it together.

Rachel (40:24)

I don't I don't know what all is, autoimmune, but I know that those two things are

Scott Benner (40:27)

for sure. Thyroid? Celiac?

Rachel (40:30)

Oh, here we go. My oldest actually is getting blood work because her skin is getting dark. She's having hyperpigmentation all of a sudden all coming started at the top of her arms, and it's all coming down. So they're gonna be checking her thyroid, and they're gonna be checking for, like, other things. And but they said she might have some insulin resistance.

Scott Benner (40:47)

Oh, does she have other thyroid like issues? I have no idea. I wouldn't even

Rachel (40:52)

know where to begin to know what that would be.

Scott Benner (40:54)

You have the Internet though. Is that correct?

Rachel (40:56)

Yeah. But oh, god. I don't go to the Internet. That's just scary. That'll have you thinking you're dying tomorrow.

Scott Benner (41:01)

But but if you why not say why not, like, use the machine and say, list all thyroid symptoms?

Rachel (41:10)

Did I tell you that I'm already an anxious person?

Scott Benner (41:12)

Yeah. But but but isn't I'll be like, oh my god. She's dying in five minutes. Well, I don't think it's gonna kill her in five minutes, wouldn't it give you an opportunity to stop that from happening?

Rachel (41:22)

I mean, I guess it could,

Scott Benner (41:23)

but Is there not more anxiety with the unknown?

Rachel (41:26)

No. I for me, I think it's I I think it's hand in hand right there at the same level. Because I feel like once so, like, okay. With my son, I had no idea at all. I was completely oblivious. So was he. So was his dad. We didn't know nothing, and we were living life. We were we were building a snowman the day he got diagnosed. So we were out there having a lot of fun. And then and then, you know, bam. All of a sudden, life has changed, and I'm like, oh my god. What if I can't keep him alive? What if I mess things up? What if you know what I mean?

Scott Benner (41:57)

So That stuff's gonna happen anyway.

Rachel (41:59)

Yeah. It is. Ready? I slept through a low, and that triggered me to get a sugar pixel, so that was great.

Scott Benner (42:05)

Did you use my link customtype1.com/juicebox?

Rachel (42:09)

No. Because I didn't know about

Scott Benner (42:10)

you at time. Thanks a lot, Rachel. Because I think I would have made a dollar if you would have done that. But now

Rachel (42:16)

I didn't even know about your podcast until I met the other type one mom that has the service dog because you actually, you did a interview with her, and she's the one who even told me about your podcast.

Scott Benner (42:25)

Was she nice when she told me about when you told her?

Rachel (42:28)

No. She was like, this guy, he is so rude. No. I'm just kidding. No.

Scott Benner (42:32)

But a She jerk. But a couple of the episodes were helpful. Hey. Really quick. It's a yes or no. We're talking about your daughter. Right?

Rachel (42:39)

Yes.

Scott Benner (42:39)

Fatigue, extreme tiredness, or lack of energy? Yeah. Weight gain, unexplained increase in body mass? No. Cold intolerance, excessive sensitivity to cold temperatures?

Rachel (42:48)

Oh,

Scott Benner (42:49)

yeah. Constipated, infrequent, or difficult bowel movements? No. Dry skin, rough, scaly, or flaky skin texture? No. Puffy face, swelling or puffiness around the face and eyes?

Rachel (43:01)

I don't think so.

Scott Benner (43:02)

Hoarseness, rough or raspy quality to the voice? Nope. Like Marge Simpson's sisters? No. Nothing like that. Muscle weakness, reduced physical strength?

Rachel (43:11)

Maybe sometimes. Yeah.

Scott Benner (43:12)

Elevated blood cholesterol?

Rachel (43:14)

Oh, she did have that.

Scott Benner (43:15)

Muscle aches, pains, tenderness, or stiffness in muscles?

Rachel (43:19)

Sometimes.

Scott Benner (43:19)

Joint pain, discomfort, swelling, or stiffness in joints? No. Menstrual irregularities, heavier than normal or irregular periods? Nope. Thinning hair, loss of hair density, or increased shedding? Yep. Uh-huh. Uh-huh. Slow heart rate, fewer heartbeats per minute than normal.

Rachel (43:34)

When she's having a POTS episode. Yeah.

Scott Benner (43:35)

But other than that, no. Depression, persistent feelings of sadness, or hopelessness? Nope. Impaired memory, difficult recalling information, or concentrating? Nope. Is there any lumps on her neck or swelling in the base of her neck? No. Okay. But she has some of those things. She has the, the thing with the thing. And the doctor says, let's look at the thyroid. Is that right?

Rachel (43:53)

Yeah. So she I don't know what all she wanted to

Scott Benner (43:56)

Full thyroid panel. Let's hope.

Rachel (43:58)

She wanted to look at her thyroid, and then she said she was gonna check, like, her a one c and all that stuff. So

Scott Benner (44:02)

Okay.

Rachel (44:03)

We'll see what comes of it.

Scott Benner (44:04)

When is that happening?

Rachel (44:06)

This weekend. I gotta take her on Saturday.

Scott Benner (44:08)

Well, first of all, I hope you get good news. Yes. Me too. And if if if not, if you get news on the thyroid issue, it's one little pill once a day.

Rachel (44:16)

Well, that'd be fantastic.

Scott Benner (44:17)

And then all the things you said yes to, if they're caused by that, away. Hopefully. Go away.

Rachel (44:21)

Yeah. That would be fantastic.

Scott Benner (44:23)

Much and then then where's your anxiety? Your anxiety is much better. Right?

Rachel (44:27)

Oh, yeah. For that. I'm just an anxious person.

Scott Benner (44:32)

I understand. You could drop

Rachel (44:33)

a cup next to me, and all of a sudden, I'm in a full blown panic attack, and I'm just I'm done for the whole day.

Scott Benner (44:38)

Listen. You get a pass. No one's gonna hold your feet to the fire on this, but what I'm saying is

Rachel (44:43)

But no. Yeah.

Scott Benner (44:44)

Then the worry for her goes away a little bit. Yeah. In a world where you're going to be anxious anyway

Rachel (44:50)

Right.

Scott Benner (44:50)

Why not do the things that help yourself and be anxious instead of not doing the things that help yourself and be anxious?

Rachel (44:56)

Right.

Scott Benner (44:57)

Right.

Rachel (44:57)

No. Yeah. Well, and then the thing is is that, you know, I've been working with the doctor on her symptoms for a long time, and it took a long time to even get to where we're at now. Like, when with the we I started with doctors on this in California, and then it took moving all the way to Alabama and finding a good doctor to, you know, actually look at anything further than.

Scott Benner (45:18)

It's it's it's just a check engine, really. Like, you go through and check things, and then it tells you, you know, if it if it connects to something. And and I'm wondering just as you're talking about it, if it would have helped. Like, so there's, a symptom selector. Right?

Rachel (45:35)

Right.

Scott Benner (45:35)

Insulin resistance, weight gain, weight loss, salt cravings, heat intolerance, cold intolerance, frequent thirst. And you can go through and check off any of those that, like, you may have. Then it goes on. There's gastrointestinal, connective structural issues, joint pain, hypermobility, stuff like that. Neurological, like brain fog or migraines, sleep issues, dizziness. And in the end, there's let me see here. One, two, three, four, five, six, seven, eight. There's maybe 40 things you could check off. Right? Right. And it's trained on I think at this point, it's 70 over 70 different clinical autoimmune related conditions.

Rachel (46:18)

And and

Scott Benner (46:19)

you check all

Rachel (46:19)

those fantastic.

Scott Benner (46:20)

You check all those things off and then, like, watch. Let's just do let's do easy ones. Let's do frequent thirst. I don't know. Delayed digestion, brain fog, fatigue. Alright? I scroll down and it's highlighted any of the things that that connect with that. And so it's not, you know, a lot of a lot of autoimmune issues overlap there.

Rachel (46:51)

Right.

Scott Benner (46:51)

So it brought up, just to give you a couple, this audit. What did you just say? This how do you say that word? Dysautonomia?

Rachel (46:58)

That one.

Scott Benner (47:00)

Mhmm. POTS. Mhmm. Non celiac gluten sensitivity, long COVID, chronic Lyme, type one diabetes, like, you know, Hashimoto's.

Rachel (47:12)

So That's fantastic. Yeah.

Scott Benner (47:13)

So And

Rachel (47:13)

you you said you have that on there already or that's what you're working on?

Scott Benner (47:16)

I'm working on it right now. So, like, using Hashimoto's as an example, I chose fatigue and lethargy. Right. And so it highlights Hashimoto's. It shows you that you chose fatigue and lethargy, but there's also cold intolerance, unexplained weight gain, constipation. And so, like, if you go through, you know, using what you were saying with your daughter and we start adding the things, that you that you said yes to. Right. So we'll do them again for her. Right? What were the what were the things that you said? She has fatigue? Right? Did you say constipation?

Rachel (47:48)

No. Hair thinning.

Scott Benner (47:50)

Hair thinning. Hold on a sec.

Rachel (47:51)

She's always dizzy.

Scott Benner (47:52)

Really?

Rachel (47:53)

Always. Always dizzy.

Scott Benner (47:55)

Okay.

Rachel (47:56)

She's got hyperpigmentation on her skin now.

Scott Benner (48:00)

Always dizzy. Mhmm. Tissue for unexplained rashes, dry eyes, mouth, elastic skin.

Rachel (48:09)

She's intolerant to cold.

Scott Benner (48:10)

Cold intolerance. Mhmm. Okay. So now while we're, like, starting to click on the I don't even have them all checked, but now when you scroll down and it gives you a more highly you're more highly likely to have thyroiditis at this point. Like, it's just it's just the Right. It really is what I No.

Rachel (48:25)

That's fantastic.

Scott Benner (48:26)

I hope so. Like, I I I

Rachel (48:28)

Especially to see a list, like, of, okay. Here's a bunch of symptoms. Do you have any of these? Because sometimes when people are putting their symptoms together, they don't they don't know what is relevant.

Scott Benner (48:38)

That's what I was saying.

Rachel (48:39)

What goes together.

Scott Benner (48:40)

Yeah. And and and there it it does little nice things like like there's something here called HPA access issues, like and I thought, no one knows what that is. So I changed the program. So if you hold the mouse over top of it, it says disruption in the communication between the hypothalamus pituitary gland and adrenal gland. So yeah. Isn't I

Rachel (48:58)

That's amazing.

Scott Benner (48:59)

And then I put it on everything else. So, like, even stuff like salt salt cravings, which are, like, I mean, pretty obvious what that means. But if you mouse over, strong and persistent urge to consume salty food. So everything has a definition to it, so people can choose. And then once you cluster a cup once you've clustered together, like, let's just throw a brain fog on here and that's it. Right? And there's a button you can do an AI analyzation to, like, look at clusters. So you click on it. It kinda uses AI to analyze clinical clustering. And then it kinda comes back with a little report for you to look at, you know, get more context from. You can scroll down again. It tells you, like, the type one comorbidity delta, like thyroid has, like, a bigger connection to type one than celiac.

Rachel (49:50)

Right.

Scott Benner (49:50)

POTS is third. Like, this kind of stuff. Right?

Rachel (49:53)

Mhmm.

Scott Benner (49:54)

And then there's just all kinds of

Rachel (49:56)

Well, and that could be fantastic too for people who's who are wondering about type one too because a lot of I've noticed a lot of stuff stuff that he had that they were calling post concussion syndrome or whatever were also, like I think that those were diabetes. I don't think that those were post concussion.

Scott Benner (50:13)

Yeah. I was gonna You know what mean? I was wondering about that too. Like yeah.

Rachel (50:16)

So, like, his brain fog, like, was like, it's always hard to remember. I can't ever remember anything. And, you know, like, that could be ADHD. That could be a 100,000 things.

Scott Benner (50:24)

But then after that, mean coming. Yeah. That went away. Right? I'm sorry. I cut you

Rachel (50:29)

off. Yeah. It started to go away. Like, a lot of the things that they were telling me, oh, it's it's just from his concussion. It'll get better. It'll get better. And then they finally were like, oh, it's post concussion. But then at you know, right after that, they found diabetes, and I'm like, I think a lot of that was diabetes.

Scott Benner (50:43)

Did he start that fight when he got clocked?

Rachel (50:45)

No. No? So so this is what happened, actually. So it was him and two other boys, and they're they're sixth graders. Right? They just started sixth grade. He had had trouble with this boy the first month of school. And then in October, the three boys were trying to get into their lockers. This boy came up and was slamming their locker lockers closed every time that they would get them open. So my son, like, turns and I saw the video of all this happen because our schools have recordings.

Scott Benner (51:12)

Oh my god. How would I have gotten away with any of the things I got away with if there were cameras?

Rachel (51:16)

Terrible. Terrible. We would be caught right away. Absolutely terrible. So he turns around and, like, flings his arm behind him, like, to tell him to knock it off. Right? And then the other kid said something, and then my son got up. And then the two of them moved down the hall, and they're, like, tussling. And then this boy grabs my son by his shoulders and rams him headfirst into the concrete wall.

Scott Benner (51:41)

It's an escalation.

Rachel (51:42)

And my son

Scott Benner (51:44)

Collapsed, I imagine.

Rachel (51:46)

Yeah. And immediately collapsed.

Scott Benner (51:47)

Yeah.

Rachel (51:48)

And that boy was just standing there staring at him. Mhmm. Wasn't calling for help. Nothing. And then when my son first woke up, like, he couldn't even talk. He couldn't even make words. He couldn't feel the whole right side of his body.

Scott Benner (52:00)

Jesus.

Rachel (52:01)

And so,

Scott Benner (52:02)

you know, I Scary.

Rachel (52:03)

I wonder sometimes I wonder if the concussion, you know, kinda triggered his autoimmune stuff because he had absolutely no medical problems before this at all.

Scott Benner (52:13)

Yeah. There's a lot of autoimmune in your life, so I don't know. So Yeah. I don't know. So I I was wondering if brain fog and other issues of undiagnosed type one maybe led him to get into a fight, actually. Maybe. I don't know. Yeah. Because you kinda act a little differently. I didn't get to say at the end of this thing that I'm working on, you can click a button to generate a script to talk to your doctor with.

Rachel (52:34)

Oh, that's fantastic because most people wouldn't know how to bring that

Scott Benner (52:37)

up. Right. My persistent cluster of symptoms including chronic fatigue, debilitating dizziness, cold intolerance, and brain fog suggest a systematic imbalance that requires targeted investigation, not just the symptomatic management. I am requesting appropriate comorbid comorbidity screening to rule out underlying autoimmune endocrine or nutritional deficiencies. Specifically, I need a comprehensive panel, full thyroid panel, ferritin. Can we please partner together to to look at these deeper markers? I'm committed to finding the root cause. So it helps people to, like, talk about it when they maybe wouldn't know how otherwise. I'm also have this other button here. I'm not this I haven't completely decided if this one gets to stay or not, but it's a it kinda just gives you more of, a a holistic plan for yourself at home, like, things you could do with food and stuff like that would help. Anyway, this is what I do in my, free time.

Rachel (53:29)

No. Keep working on it because I think that that that really has I mean, that's really got something there.

Scott Benner (53:34)

I hope so. Especially for someone like you and you are much more like other people than you think, like, the people I talk to all day long have stuff like this going on their family all the time. Yeah. Like, I just thought, like, maybe instead of having to sit in your house and wonder Right. Just sitting down and going, like, click click click click click click click. Oh, hell.

Rachel (53:55)

Oh. I that checks.

Scott Benner (53:57)

Yeah. Now I have a way to look at this. Like, right because I'm not saying it's I'm not saying it's gonna diagnose you.

Rachel (54:02)

Well, no. But it can definitely help you to. It's almost like when you people tell you to ask your doctor, what's your differential diagnosis so that they, you know, think outside of the box, not just what's normal, you know, what typically comes with these symptoms. Okay. But what else can happen? Yeah. What else can it be?

Scott Benner (54:19)

This is not an announcement of it. So if you're listening and you're like, I really wanna hear it, you're gonna have to wait for another episode when I say I put it on my website.

Rachel (54:25)

Right.

Scott Benner (54:26)

I don't know. If I told you how I got to it, it's, it's a big part of why I think the community is, like, really important. I Yeah. Like, I look at people's struggles where they're coming up short with things that are stopping them that I wish, you know, wouldn't get in their way. I asked a bunch of questions about I put up a post about asking people what other autoimmune issues they have in their lives, and you should have seen the incredible list that came back. And so I took that list and basically pulled it all together and created, I don't know, you know

Rachel (55:00)

I love that.

Scott Benner (55:01)

Started making this up from that.

Rachel (55:02)

I think it's gonna be so helpful for people, especially, like, you know, for me, like, I live in Cal or Alabama. I'm from California. I don't have my family here. I don't have, you know, really anyone here, like so sometimes it it does feel very lonely

Scott Benner (55:18)

Yeah. Once you get

Rachel (55:19)

a diagnosis for, you know, diabetes. And so you're like, okay. What else can possibly go wrong?

Scott Benner (55:24)

Like Well, especially in autoimmune, in a situation where you can you know, using this as an example, like, you can click on brain fog and dizziness. It it doesn't point to one thing. It points to, like, nine things.

Rachel (55:38)

Yeah.

Scott Benner (55:39)

Right? And so Yep. When you go to the doctor and say, have brain fog and dizziness, they're not gonna say, oh, you know, I I don't know. I think you have mast cell activation syndrome. We should look into that. And I'm not saying that would be that, but at least you now have, like, well, it's possible it's one of these nine things.

Rachel (55:57)

Right. And Yeah. Like, let's let's

Scott Benner (55:59)

Right. Like, let's

Rachel (56:00)

Get through and make sure that none of these are happening so that we can figure out what as is actually happening. Yeah.

Community and Moving Forward

Scott Benner (56:06)

Yeah. Anyway, what made you wanna come on the podcast?

Rachel (56:09)

I listened to a couple of your podcasts after that. Other mom had told me about them.

Scott Benner (56:14)

Mhmm.

Rachel (56:14)

And it just and I found it so like, everything was just so crazy because everything happened so fast, but my support group grew so early on. And, honestly, a lot of the episodes were they made me feel less alone. You know? Okay. Like, I live in a state where I don't really have I don't have my family here. It's just me and my kids, and my ex husband's family's here, which they're fantastic. I love them, but, you know, they're not always involved all the time, like, day to day. But it just made me feel less alone to know that, you know, there are people that are having the same fears that I have and experiencing the same things. And you know what I mean? So I just was like, well, if our story can help anybody because our story isn't just about, you know, my son got diabetes. We had a lot of things that led up to to our life story, and sometimes, you know, it's hard to deal with the present when you have your past still that you're dealing with. You know what I'm saying?

Scott Benner (57:05)

Yeah. No. You have a bigger you have a I mean, obviously, you have a bigger thing going on. Yeah. Quite honestly.

Rachel (57:10)

But you know what? We live every day, with happiness, and we're not afraid anymore. And, you know, honestly, like, honestly, diabetes has made me appreciate all of my children a lot more because

Scott Benner (57:21)

How?

Rachel (57:22)

It's not just him. Like, my oldest you know, the boys go to their dad's house every other weekend, and I usually work the weekends that they go. And my oldest will call me, and she'll be like, mom, the SugarPixel went off. Grayson's low. And he's not even there. You know what I mean? Like, he's with his dad, but she's still that SugarPixel went off. We've gotta deal with this. And I just you know? And then, like, his brother his his brother, they share a room, and I'll wake my son up, you know, four or five times a night sometimes, and his brother gets disrupted too. His sleep gets disrupted, and he still goes to school every day. His grades are good. He still goes to baseball. He doesn't complain. He you know what I mean?

Scott Benner (58:01)

So, like You got a little team there. You're realizing that those kids are all on each other's side.

Rachel (58:05)

Exactly. And all of my children, like, from the very beginning, I every single one of my children has given their brother an insulin shot. Every single one of my children has poked their own finger. Every single one of my children has poked his finger. Every single one of my children knows where all the emergency medicine is. You know? So, like, we all dove in. We all helped each other, and I was like, wow. I really did I really did get lucky with some fantastic kids.

Scott Benner (58:29)

How much of that do you think is the way you built your family though based on your upbringing and your experiences?

Rachel (58:34)

You know, I don't know. Sometimes I wonder. Sometimes I wonder if I'm doing a good job, and then diabetes came and I saw all my kids rally around my son. And I said, okay. I think I did do a good job.

Scott Benner (58:46)

I mean, when I hear you talking, it it seems like and I know I know you an hour, but it seems like that, you know, you have a feeling of, like, we need to be self reliant. Yeah. Right? Because you it's hard to trust other people, and you you know that that, you know, other people can be brutal at times. And so but it doesn't feel like your kids are, like, hunkered down in a bunker, like, you know. Yeah. Right? But there's they still feel like they have everyone's back from your description.

Rachel (59:16)

Right. Yeah. Yeah. Well, because family family is one of the I mean, family is the most important thing. Friends come and go. Partners come and go. But, you know, your family you're supposed to be there for your family, you know, till the end no matter what. Like, your family's supposed to be the one thing that you're always gonna have.

Scott Benner (59:33)

Yeah. Did you feel like you had that growing up?

Rachel (59:36)

Yeah. So my mom was really big on that. So that's who I got it from. My mom was like family first, family. You help your family no matter what. Mhmm. You stick with your family no matter what. And if you make mistakes, that okay that's okay. You go and you clean up your mess. So, like, my family is not perfect. We but we clean up our messes.

ACEs and Breaking the Cycle

Scott Benner (59:50)

Did you grow up around any of do you know what the aces are?

Rachel (59:55)

No.

Scott Benner (59:56)

Alright. You wanna do something? Hold on. We'll do something together. So when you were growing up Yes. Did you have brothers and sisters?

Rachel (1:00:06)

Yep. I sure did.

Scott Benner (1:00:08)

A lot of them?

Rachel (1:00:09)

I have one brother and two sisters.

Scott Benner (1:00:11)

One brother and two sisters. Okay.

Rachel (1:00:12)

Mhmm. And

Scott Benner (1:00:14)

did you experience any let's see. Did you experience did you see a parent abused by by another parent?

Rachel (1:00:25)

Oh, yeah. My my my mom had an abusive husband. It was really bad sometimes.

Scott Benner (1:00:32)

Did anybody in the household go to prison?

Rachel (1:00:35)

Yeah. Her husband was in and out of prison. So When he wasn't in prison, he was beating her. So So My my childhood was traumatic. Yes or

Scott Benner (1:00:43)

Real quick. Physical abuse? A parent or an adult in the house hit, beat, kicked you?

Rachel (1:00:50)

I I mean, spanked, but no.

Scott Benner (1:00:52)

Emotional abuse. A parent or adult in the house swore at you and told you, humiliated you, put you down as a child? Yeah. Were you abused sexually as a child? Yeah. Neglect. Physical neglect. You didn't have enough to eat. You were wearing dirty clothes, stuff like that.

Rachel (1:01:07)

Well, I always worried where my next meal was coming from

Scott Benner (1:01:10)

That's a yes.

Rachel (1:01:11)

When my phone bill would be paid.

Scott Benner (1:01:12)

Yeah. Emotional neglect. Did you as a child not feel loved, important, or special? Yep. Mental illness. A parent or an adult in the household was depressed, mentally ill, or attempted suicide? No. Incarcerated relative? Yes. Yeah. Mother treated violently. Did you see your mom treated violently? Yeah. Okay. Substance abuse. A household member was a problem drinker, alcoholic, or used street drugs?

Rachel (1:01:33)

Very early in life. Yes. But once I my mom actually was on drugs until I was six.

Scott Benner (1:01:38)

Did you, witness a divorce of your parents? Yeah. Would it surprise you to know that this list indicates that the problems you had as an adult were very easy to know were gonna happen?

Rachel (1:01:52)

No. It wouldn't surprise me.

Scott Benner (1:01:54)

You should really check out there's if you're interested in it, some mental health episodes. I'm trying to find it for you right now. And we talk about this. We're actually doing I'm actually making a series right now, basically, opposite of the aces. So the aces are are what we just went over.

Rachel (1:02:13)

Okay. Gotcha.

Scott Benner (1:02:14)

And I'm looking to see where I can put you on that episode. There's so much. Where where is it? Anyway, it's somewhere. I'll get it for you when we're done. And you can go to juiceboxpodcast.com, go to the top of the menu, there's series, and you can, like, look at the mental health series there or Right. Or juiceboxpodcast.com/lists and you'll you'll see them all there. But yeah. There so there's this basically, it's the adverse childhood experiences list, and it's not perfect. But if you have a certain number of the things on that list, you are at a much higher risk of having things like this happen in your own life. But it doesn't mean that you can't stop that from happening.

Rachel (1:02:55)

Stop it from happening. Yep.

Scott Benner (1:02:56)

Or that you can't stop it from happening, you know, for your children. Like, so all those things I just read that you've experienced, have your children experienced any of those things?

Rachel (1:03:05)

They did experience well, my oldest three experienced the abuse I went through with me.

Scott Benner (1:03:10)

Yeah. Yeah. So they saw they saw a parent?

Rachel (1:03:13)

The boys were really young, but my daughter remembers a lot.

Scott Benner (1:03:16)

Okay. And you don't you don't So you don't get high or drink in the house?

Rachel (1:03:20)

Oh, no.

Scott Benner (1:03:21)

No. Okay. But they saw a divorce. Yeah.

Rachel (1:03:24)

Like, so An ugly, ugly divorce like that.

Scott Benner (1:03:27)

But isn't it interesting though? You by the way, Rachel, you said yes to a shocking number of those things. Okay. And Do

Rachel (1:03:35)

you see why I'm so anxious on

Scott Benner (1:03:36)

the back? Could be giggling too if I was you. But your kids have been exposed to far fewer of those things. Yeah. You're doing a really good job.

Rachel (1:03:45)

I'm trying. You know? I really I really try to you know? And I've had people be like, You're just you're just coddling them. You're just no. I'm protecting them. I'm protecting my children. And there's gonna be things I can't protect them from, like diabetes or Yeah. My oldest just recently got diagnosed with a double food allergy. Like, there's gonna be things I can't protect them from that I have no control over. But if I have control over it, I'm gonna I will fight you to the duel. Like, I will duel with you till the death and protect them.

Scott Benner (1:04:15)

Telling you you're coddling your kids by protecting them from stuff like this?

Rachel (1:04:18)

It's it's been thrown around at, pickup and drop off before.

Scott Benner (1:04:22)

Good heads. Is that what you're talking about? Yeah. Yeah. Yeah. They're everywhere. You know?

Rachel (1:04:26)

Yep. Yeah. They're everywhere. But, you know, it it's your job. It's your job as a parent to protect your children. And or they'll, you know, they use you do a lot. You spoil you spoil your kids. Blah blah blah. No. My kids are focusing on being children. I'm the adult. I had children. You know? They don't do chores every single day. They do chores, but not every single day. They you know?

Scott Benner (1:04:47)

I'll give you one here because I heard you say it earlier. My son is gonna be 26 next month. I'm not gonna tell you what he I mean, he's a he's a good job and he makes a a a a good living, especially for his age.

Rachel (1:05:00)

Right.

Scott Benner (1:05:00)

Until he graduated from college and looked for a job, he had never had a job once in his life. Yeah. Right. His job was

Rachel (1:05:07)

There's no need.

Scott Benner (1:05:08)

Go to school. Go to school. Yeah. Go to school. Understand what it is you're learning.

Rachel (1:05:13)

Exactly.

Scott Benner (1:05:13)

Have fun. Enjoy your life. Play baseball. That's what he was doing, you know, and focus on those And guess what? He got a job as soon as he got out of college.

Rachel (1:05:24)

Yeah. No. And that's that's I what want my kids. I want my kids to focus on what's like, having a job. Okay. Yes. It's fun. And and you my oldest is like, well, I need money. Okay. But I can give you money. Mhmm. You know, I'm I'm well, I'm not super rich. I struggle a lot every day, like but then my kids have what they need. My kids have most of what they want. Like, I will always figure out a way. Yeah. You know what I mean? And I didn't have that. When I grew up, I had to raise my sister. I had to have a job. I had to clean the house. I had to get us to school. I had to drive my mom to work most days so that I could have a car for me and my sister to get around. Like, I want them to be children.

Scott Benner (1:06:00)

Yeah. And there's a difference between having some responsibilities, which my children have, and Correct. And being responsible for everything. That's different. Yeah. Like, I grew up being responsible for people's well-being. That's not a good position to put a 13 year old in.

Rachel (1:06:12)

No. Not at all. And and I I started at 13 doing that.

Scott Benner (1:06:16)

Yeah. Well, trust me. Me too. So And I don't think that that's necessary. Like and there are p there are people in my life who will make fun of my kids too. Oh, they you know, when my son was in college, people in our family would be like, he's never had a job. He won't be able to make it. I was like, okay. He's getting an econ degree. He's not at home smoking crack.

Rachel (1:06:39)

Exactly. Or sneaking off with boys or Yeah. You know what I mean?

Scott Benner (1:06:44)

I hear you. Like, they so anyway, it's easy for people to judge. They're only judging based on what they know, and it doesn't mean Exactly. They don't know your stuff. So

Rachel (1:06:53)

Right. And and I want my children to be children as long as possible. And that doesn't that doesn't mean my kids have no responsibilities. Like, you know, I will wash and dry clothes and separate. You have to put away. You have chores every couple times a week. You know? Like, my oldest, she babysits sometimes when, you know, I go work on a weekend or something or you know? And then they all take care of each other. Like, I say, okay. I'm gonna go work for five hours. You guys take care of each other.

Scott Benner (1:07:17)

And they do. Yeah. Look at that.

Rachel (1:07:18)

And they do. And and everything's fine. Nobody dies. The house doesn't burn down. Nobody's bleeding when I get home. Like

Scott Benner (1:07:24)

I wouldn't listen to this. I wouldn't listen to those those people at the drop off line. Don't worry about them.

Rachel (1:07:29)

And you know what? The my child has really good grades. My child my 17 year old who has no job and I don't put a ton of responsibilities on has a good life. She has fantastic grades. She is in a marching band. She's in the the advanced choir. She has friends. She you know what I mean? Like, I

Scott Benner (1:07:47)

didn't have

Rachel (1:07:48)

any of that fun growing up, like, I without having to worry about somebody else's well-being.

Scott Benner (1:07:54)

I'm with you. I I there's a difference between being responsible and having responsibilities. You can give them responsibilities without making them responsible. So

Rachel (1:08:03)

Yeah. And then part of, like, we were talking about the service dog. Part of that is for my son to be able to have the same experiences as his other two older older siblings who can hop in the car and just go with their friends, I don't worry. You know, like, obviously, I'll worry, but I'll worry less knowing that he has this dog that is relentless and will be like, no, bro. Stop right now. Mhmm. Stop right now and check. Something is wrong. And, you know, when he goes to college, she'll be there to wake him up, and I don't have to get up and wake him up.

Scott Benner (1:08:29)

Yeah. Can I tell you something? Our conversation, has led me to the believe that when I'm done with this autoimmune thing, I'm gonna build one of these for the the adverse childhood experiences list too.

Rachel (1:08:40)

I think you should. Uh-huh. I think you should because people need to, you know, people need to know what they've experienced. And and like I said, what I went through, it was traumatic. My life was not the best, but I believe that it made me who I am today. It made me strong. It made me be able to be strong for my children.

Scott Benner (1:08:55)

Yeah.

Rachel (1:08:56)

And it, you know, made me aware of it sucks that it made me aware of the dangers in life, but now I'm able to know what to look for to keep my children safer.

Scott Benner (1:09:03)

Yeah. I I listen. I take your point. It would have been nice if someone would have just told you those things instead of, like Right. You know, accosting you with them. But Right. Yeah. Instead of putting you through it. But I I do take your point. And you are, I mean, I think a a shining example of someone who's been resilient against a lot of odds. And Well, thank you. I appreciate it. Well, that's awesome. And you I try. Yeah. Listen. You're not like, if you're not doing crack in the in the private of your own home Yeah. Or No. You know, outside pulling the wings off of flies or something like that. I think you're doing great. You know?

Rachel (1:09:33)

No. I actually you know, I never really like, I think I experienced with weed when I was a kid, and I drank when I was a kid. Like, I experienced that. Other than that, like, I grew up in narcotics anonymous. My mom got clean when I was six. And the stories that I heard growing up were enough for me to say, no. That's not for me. That's not the life that I wanna have.

Scott Benner (1:09:56)

Yeah. Yeah. You So you were somebody put you on a path early. Yeah. Even the Yeah. So difficult question at the end. K. What happened to you when you were eight when you were 18? Yes. It happened previously as well?

Rachel (1:10:12)

Yeah. Well, sort of. So I was molested when I was 10 by my best friend's dad, and she was too. Oh, nice. And we had never told anybody, and she still actually talks to her dad. And her siblings will have their kids around her dad. And I'm just like, I I kind of

Scott Benner (1:10:27)

Crazy.

Rachel (1:10:28)

Lost touch with her because I'm like, how can you be around this person and let your nieces and nephews be around this person knowing what he did and not telling them?

Scott Benner (1:10:36)

Do you think

Rachel (1:10:37)

You know?

Scott Benner (1:10:37)

Do you think that there's anything about your first experience that in any way, I don't know what the right terminology here is, led to or influenced it happening again? Like, are you around certain kinds of people? Is it a certain area you live in? Like, is it

Rachel (1:10:53)

Well, so I did grow up in a bad area, but, you know, I wasn't even at home when all of that happened. Like, I was out of my home.

Scott Benner (1:11:02)

At a friend's house.

Rachel (1:11:03)

You know, like, I was at my friend's house when her dad did that. I was at my cousin's. It's not really my cousin. It was just a friend, but, like, a family friend, that I called a cousin. I was at her house when we were, you know, when I was 18. Like, every example of sexual abuse that happened to me was outside of my home.

Scott Benner (1:11:19)

Right. But the way you described your your your family growing up with Yeah. Drugs, is it a birds of a feather situation? Like, your mom's not really good friends with, the I don't know. With the Queen of England too. Right? You know what I mean? Like, it's Right. It's sort of, like, I don't know if she's a good example or not, by the way, of of

Rachel (1:11:37)

My my mom is fantastic. So, you know, she probably wasn't around the best people growing up, like, when I was very young. Because, obviously, she was on drugs and stuff. But when she got clean, she made the decision to really, like, change our life. And for a long time, we did live in a in poverty. We lived in a bad area, but she went to college. You know? She was four kids. She went to college.

Scott Benner (1:11:59)

Yeah.

Rachel (1:11:59)

Four kids, no help. She turned our lives around, you know, and she worked really hard to do that. And now she has thirty years clean.

Scott Benner (1:12:08)

Oh, good for her. Ain't that great?

Rachel (1:12:09)

So and she you the the people that I grew up around in Narcotics Anonymous, like, there are people that have been in there for thirty five, forty years that have known me since I was a little kid that really helped to shape who I am. You know? The parties that we would go to, the the you know, they would call them little birthday parties for to celebrate your clean birthdays and, like, the group of kids I hung out with. Like, it really kept me away from, I think, a lot of the bad stuff once I was in my, like, teenage years.

Scott Benner (1:12:32)

Well, I don't I don't doubt at all that there are a lot of people who go through these things also end up being, like, some of the greatest people once they've gone through them too. And Right. It's and they do often stay behind to help others, which is Mhmm. Which is really wonderful. Yeah. And do you think if I read that list to your mom, she'd be like about her her childhood, she'd be like, yep. Yep. Yep. Or do you or no?

Rachel (1:12:53)

No. Yeah. I think she definitely would. I think she definitely has. My mom, you know, my mom didn't come from a good family either, but, you know, hopefully, my kids will be stronger. And, honestly, like, sometimes I look at what like, with my son with type one when it has been a fight with his school from the beginning. And I feel like everything I went through helped to make me stronger to be able to fight for him. Mhmm. Because before, I probably would have just been silent and just let, you know, them do whatever they wanted. Like, they didn't wanna follow his health plan. They didn't wanna follow his IP. They didn't wanna do none of this. They you know what I mean? And I was like, no. You're gonna do this. You're gonna do that. He's doing this. Like, I pushed back against them, and I had the confidence and the strength to do that. And I think that all comes from what you experience when you grow up.

Scott Benner (1:13:36)

Yeah. Well, I hope you and everybody listening take some, solace in the idea that there's actually as much as there's an aces list, there's a pace list too, and it's positive Yes. Situations you can put your kids in to give them good child outcomes. And I am building a series with Erica Forsyth right now about that. She's a a therapist and she has type one. Yeah. You know, we talked about the aces a couple of times in the podcast, and then there was this day I was just sort of sitting at my desk thinking about, like, what do I do for the podcast? What do do for the podcast? And I thought, there must be an opposite list. Right? Like, if there's a list of if there's a list of things that you're around and it possibly could lead you in this direction Mhmm. Is there not a list of things that you could put yourself around that could possibly lead you in an opposite direction? It turns out there was. Right. And I was like, I'll be done. I thought I figured something out, Rachel, but it turned out it it already existed.

Rachel (1:14:29)

Well, and with my sons, you know, they go to a household that's not the best. They go to a household with somebody who's not is not even somebody I would be friends with now. Like, when I look back, I would not even choose to be friends with my ex husband. Mhmm. And then they come to my house where, you know, it's more positivity. It's more let's talk about things. It's you know, I get to have conversations that are trying to help teach them stuff. Like, my son, when I would make a fuss about, you know, them not following things at school for his type one diabetes, he'd be

Scott Benner (1:14:56)

like, mom, just please don't say anything because, you know, the teacher were treating him different. He's like, and I feel bad

Rachel (1:15:00)

when the teachers get mad. And I said, well, you should not feel bad about advocating for yourself.

Scott Benner (1:15:04)

Yeah. It's tough.

Rachel (1:15:05)

You advocate for yourself of no matter what.

Scott Benner (1:15:07)

That's a tough position to have to put a kid into.

Rachel (1:15:10)

You know what I mean? And so, like, they even though they are going between what I would call a good home and a not so great home, I feel like they're pretty level. You know? And so I think that a big part of that is that the positive is trying to combat and defeat the negative. You know what I mean?

Scott Benner (1:15:28)

Yeah.

Rachel (1:15:29)

So Good for you. Definitely, I think there are some good things. And then, you know, just putting them around positive people. Like, in the very beginning, I found Camp Sou Harris, and I found the junior breakthrough type one is what they're called now. But, like, I found those early on, and I got to be around some amazing people who have type one who are so positive and so caring. And I got to bring him into that so early. Mhmm. You know what I mean? And so I think that that also helped him have good you know, learn to have good habits, with his diabetes. So I think there's definitely things that you can do and you can choose to do to put those positive things in your kid's life to help, you know, lead them down the right path and help their life be good.

Closing Thoughts and Links

Scott Benner (1:16:09)

Yep. Hey. Listen. I think doctor King said it. Right? Darkness cannot drive out darkness. Only light can do that. So you just keep lighting candles and creating light, and and it it makes the darkness go away. It does. Rachel, you were delightful. I was Oh, thank you. I was pretty good, but you were you were better.

Rachel (1:16:27)

You were alright.

Scott Benner (1:16:28)

Yeah. I did my best.

Rachel (1:16:30)

You know, try again next time. No.

Scott Benner (1:16:32)

Listen. I'm just gonna listen. I'm just gonna keep plugging away till I get this thing right. That's all. Yeah. I really do appreciate you doing this. I Yeah. I did not

Rachel (1:16:40)

you letting me.

Scott Benner (1:16:41)

Oh, it's a pleasure. I didn't expect this story. I think it really, went in some interesting directions that I hope left people with a lot of ideas about how to help themselves. And, at the very least, they can, they can walk away from this thinking, I did not go through half the stuff she went through Right. And feel better about that. Nothing wrong with that. Every once in while, just looking over and going, I'm doing better than her. So

Rachel (1:17:08)

It's okay. You know what? And and hopefully, somebody will hear it and say, you know, just because we have diabetes in our life now doesn't mean that all of our the rest of our life is null and void.

Scott Benner (1:17:19)

You're a very upbeat person.

Rachel (1:17:21)

So I yeah. It took a long time to get here. I spent a lot of years in anger, a lot of years in fear. I was afraid of my children even going to a playground and falling down. Like, it it really did take a lot of work, and I've really honestly, I got it I went started going to church again about a year ago. And, you know, I'm just living out of the philosophy that the Lord has not brought me this far to let me fall and to let me fail. And as long as I keep living true to myself and being a good person and being who I am, then only positivity can come into my life.

Scott Benner (1:17:53)

Good for you. That's awesome. It really is. That's fantastic. Yeah. I am very happy for you. I I think you are a success story, of the highest order.

Rachel (1:18:03)

Thank you.

Scott Benner (1:18:03)

And I those kids and you are sound like you're off having a nice time. Enjoy baseball season. I miss going to watch my kids play baseball.

Rachel (1:18:10)

Oh my gosh. And he's enjoying it so much, and I didn't think he would. But and his whole team is so supportive, and his coach is awesome. His coach had a type one on his team before.

Scott Benner (1:18:18)

Mhmm.

Rachel (1:18:19)

So it's it's really great. And they all and Halo is his service dog. She loves to say hey to everybody. So in the beginning of practice, I'll take her over to the field and everybody comes and says hi to her and all that, and then we go and focus on what we're supposed to be doing. And, I mean, it really is, like, I found some really great people, you know, for him to be around.

Scott Benner (1:18:37)

Do you ever make it over to the college? That that's some pretty good baseball in Alabama.

Rachel (1:18:41)

So, actually, we have a team that we got matched with through Team Impact, and so crazy. They're my next door neighbors, and they play lacrosse. You know, we hang out with them all the time, and we're gonna start doing some more stuff with the lacrosse team the college, and and those boys are really fantastic.

Scott Benner (1:18:56)

So Yeah. We won't hold it against them for using a stick while they're playing, but that's fine.

Rachel (1:18:59)

But you know what? They're really great. They're and and, actually, lacrosse is really fun. Have you ever watched it?

Scott Benner (1:19:04)

I mean, I like when they hit each other with the sticks. I think that's pretty cool.

Rachel (1:19:08)

It's kind of like hockey, but not hockey.

Scott Benner (1:19:10)

I like how they run behind each other and just, like And just push people down. Yeah. You're like, yeah. People on the back with this gun like, down. Like, it it reminds me of ice hockey that way. Like, the ice hockey players just right up the end. They just chop at your legs. You're like, hey. I'm trying to hit this little thing with the stick. Cut me a break. Yeah.

Rachel (1:19:26)

The best part of the game is when they get in the fights, and you're just like, yeah. Fight.

Scott Benner (1:19:30)

Alright, Rachel. I know you said you've done a lot of work, but I do think you're still itching to. Itching to punch somebody in the face. I think you need to get through that. Okay? I

Rachel (1:19:35)

There's still some to go through.

Rachel (1:19:41)

I was telling my kids something, guess what, mom? And I'll be like, punch in the face. And they're like, no, mom.

Scott Benner (1:19:44)

Not do that. Let's not do that. Alright. Hold on one second. You're terrific. Give me a second.

Rachel (1:19:49)

Okay. Thanks.

Scott Benner (1:19:59)

This episode of the Juice Box podcast is sponsored by the Omnipod five. And at my link, omnipod.com/juicebox, you can get yourself a free what'd I just say? A free Omnipod five starter kit. Free? Get out of here. Go click on that link. Omnipod.com/juicebox. Check it out. Terms and conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox. Links in the show notes. Links at juiceboxpodcast.com. Dexcom sponsored this episode of the juice box podcast. Learn more about the Dexcom g seven at my link, dexcom.com/juicebox. Okay. Well, here we are at the end of the episode. You're still with me? Thank you. I really do appreciate that. What else could you do for me? Why don't you tell a friend about the show or leave a five star review? Maybe you could make sure you're following or subscribed in your podcast app, go to YouTube and follow me or Instagram, TikTok. Oh, gosh. Here's one. Make sure you're following the podcast in the private Facebook group as well as the public Facebook page. You don't wanna miss please, do you not know about the private group? You have to join the private group. As of this recording, it has 74,000 members. They're active talking about diabetes. Whatever you need to know, there's a conversation happening in there right now. And I'm there all the time. Tag me. I'll say hi. How would you like to share a type one diabetes getaway like no other? Join me on Juice Cruise twenty twenty six. You may be asking, what is Juice Cruise? It's a week long cruise designed specifically for people and families living with type one diabetes. It's not just a vacation. It's a chance to relax, connect, and feel understood in a way that is hard to find elsewhere. We're gonna sail out of Miami, and the cruise includes stops in CocoCay, San Juan, Saint Kitts, and Nevis aboard the stunning Celebrity Beyond. This ship is chosen for its comfort, accessibility, and exceptional amenities. You're gonna enjoy a welcoming environment surrounded by others who get life with type one diabetes. I'm gonna host diabetes focused conversations and meetups on the days at sea. There's thoughtfully designed spaces, incredible dining, and modern amenities all throughout the celebrity beyond. Your kids can be supervised, there's teen programs so everyone gets time to recharge. Not just the the kids going on vacation, but maybe you get the kickback a little bit too. There's gonna be zero judgment, real connections, and a whole lot of sun and fun on Juice Cruise 2026. Please come with me. You're going to have a terrific time. You can learn more or set up your deposit at juiceboxpodcast.com/juicecruise. Get ahold of Suzanne at cruise planners. She will take care of everything. Links in the show notes. Links at juiceboxpodcast.com. If you have a podcast and you need a fantastic editor, you want Rob from Wrong Way Recording. Listen. Truth be told, I'm, like, 20% smarter when Rob edits me. He takes out all the, like, gaps of time and when I go, and stuff like that. And it just I don't know, man. Like, I listen back and I'm like, why do I sound smarter? And then I remember because I did one smart thing. I hired Rob at wrongwayrecording.com.

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