#1838 Psychopath with Peanut Butter

Single mom Sarah manages complex autoimmune conditions while navigating her teenage son's unpredictable type 1 diabetes growth spurts , exhaustion , and a dog that buried his pump.

Companies that Support Juicebox

Simplify Lifewith Omnipod
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TandemControl-IQ+ with AutoBolus
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Touched By Type 1
EversenseOne Year One CGM
Eversense
Simplify Lifewith Omnipod
Omnipod
DexcomG7 15 Day Sensor
Dexcom
Save 20%Save 20% with offer code: JUICEBOX
Cozy Earth
US MEDGet your Diabetes Supplies
US MED
ContourEasy to Use and Highly Accurate
Contour Next
MiniMedMake everyday a better day
Minimed
TandemControl-IQ+ with AutoBolus
Tandem
CommunitySupport Touched By Type 1
Touched By Type 1
EversenseOne Year One CGM
Eversense

Key Takeaways

  • Managing Multiple Autoimmune Conditions: Sarah navigates single motherhood and entrepreneurship while managing her own complex autoimmune diseases, including Lupus, Hashimoto's, and Ehlers-Danlos Syndrome.
  • Alternative Pain Management: Facing severe joint and muscle pain, Sarah utilizes holistic approaches and medical marijuana (vaping/edibles) to manage her symptoms and get some rest without relying on heavy immunosuppressants.
  • The Perfect Storm of Diagnosis: Her son’s T1D diagnosis occurred during a chaotic weekend of family events, stress, and moving, which initially masked classic symptoms like frequent urination as behavioral or environmental changes.
  • Growth Spurts and Unpredictable Lows: Rapid adolescent growth and massive hormonal changes can cause severe fluctuations in insulin needs, leading to intense, unpredictable overnight low blood sugars despite consistent routines.
  • The Value of the T1D Community: When the family dog unexpectedly buried her son's insulin pump in the snow, a local school connection provided a backup pump, highlighting the incredible, rapid support network within the diabetes community.

Resources Mentioned

FULL EPISODE TRANSCRIPT

Introduction & Sponsors

Scott Benner (0:00)

Friends, we're all back together for the next episode of the Juice Box podcast. Welcome.

Sarah (0:13)

Hi. I'm Sarah. I'm a single mom of three kids running a full time real estate business, a construction business, and my oldest child is a type one diabetic.

Scott Benner (0:24)

If you'd like to hear about diabetes management in easy to take in bits, check out the small sips. That's the series on the Juice Box podcast that listeners are talking about like it's a cheat code. These are perfect little bursts of clarity, one person said. I finally understood things I've heard a 100 times. Short, simple, and somehow exactly what I needed.

Scott Benner (0:45)

People say small sips feels like someone pulling up a chair, sliding a cup across the table, and giving you one clean idea at a time. Nothing overwhelming. No fire hose of information. Just steady helpful nudges that actually stick. People listen in their car, on walks, or rather actually bolusing anytime that they need a quick shot of perspective.

Scott Benner (1:06)

And the reviews, they all say the same thing. Small sips makes diabetes make sense. Search for the Juice Box podcast, small sips, wherever you get audio. Nothing you hear on the Juice Box podcast should be considered advice, medical or otherwise. Always consult a physician before making any changes to your health care plan or becoming bold with insulin.

Scott Benner (1:29)

The episode you're about to listen to was sponsored by touched by type one. Go check them out right now on Facebook, Instagram, and, of course, at touchedbytype1.org. Check out that programs tab when you get to the website to see all the great things that they're doing for people living with type one diabetes. Touched bytype1.org. Today's episode is also sponsored by Tandem Mobi, the impressively small insulin pump.

Scott Benner (1:56)

Tandem Mobi features Tandem's newest algorithm, Control IQ Plus technology. It's designed for greater discretion, more freedom, and improved time and range. Learn more and get started today at tandemdiabetes.com/juicebox. The podcast is also sponsored today by Eversense three sixty five, the only one year wear CGM. That's one insertion and one CGM a year.

Scott Benner (2:22)

One CGM, one year. Not every ten or fourteen days. Ever since cgm.com/juicebox.

Meet Sarah: Business, Kids, and Autoimmune Disease

Sarah (2:30)

Hi. I'm Sarah. I'm a single mom of three kids running a full time real estate business, a construction business, and my oldest child is a type one diabetic. So my life basically runs on contracts, carpools, blood sugar checks, and caffeine. Most days start for me before the sun with some sort of caffeinated beverage and a to do list that's way too long and generally end with late night emails after the kids are asleep.

Sarah (2:59)

So it's not always pretty, and it's definitely not always perfect, but it's real.

Scott Benner (3:03)

Yeah.

Sarah (3:03)

I'm building a business while raising three humans, and, honestly, they're the reason I keep showing up every day. So thanks for having me, Scott.

Scott Benner (3:11)

No. It's a pleasure. I appreciate that's a great introduction.

Sarah (3:14)

Oh, thank you.

Scott Benner (3:14)

Yeah. Other people should take note.

Sarah (3:17)

Thank you so much. Yeah.

Scott Benner (3:18)

There's times when I I'll say to people, like, the next sound we hear will be you introducing yourself. And then there's this long pause, and I'm like I'm like, did they are they waiting for me to tell them to go, or are they like, as and then sometimes they're just collecting themselves.

Sarah (3:34)

Right.

Scott Benner (3:35)

Sometimes they'll say, you can start whenever you want. They go, oh, I'm sorry. I was like, was I too obtuse when I said the next sound we hear will be you introducing yourself? Funny. Anyway, how old are those kids?

Sarah (3:44)

So my oldest, who's the diabetic, just turned 14, actually. My middle will be 11 over the summer, and then I have a five year old daughter. Oh my gosh. Mhmm.

Scott Benner (3:55)

Wow. Wow. Wow. Wow. Wow.

Scott Benner (3:57)

I have to ask, they all the same dad? No. No. The five year old threw me off on that.

Sarah (4:02)

Yes. Yeah. Yeah. Yeah. Okay.

Sarah (4:04)

Yeah.

Scott Benner (4:04)

So Now so give me a little background on autoimmune in your family and your child with diabetes

Sarah (4:13)

Of course. Father's family. I actually I have Hashimoto's, lupus, and a few other connective tissue disease, autoimmune diseases. My father and most of his side has Crohn's or ulcerative colitis. We have zero type one diabetes on either side.

Scott Benner (4:34)

K.

Sarah (4:35)

He was a post COVID diagnosis and truly and wholeheartedly will probably forever be ingrained in my brain that that is the reason why. So

Scott Benner (4:47)

The virus that that kinda Yep. Got the whole thing going. Hey. What are you guys? Irish, English?

Scott Benner (4:52)

What's your background?

Sarah (4:53)

So I'm actually Irish and German, and his father is Mexican, actually. So

Scott Benner (5:02)

I I'm sorry. I meant your dad's your dad.

Sarah (5:04)

Oh, my dad? My dad is German and Irish. Yes.

Scott Benner (5:08)

German. Yeah. I just it it smelled like that with all the connective tissue stuff

Sarah (5:11)

and everything. Which is kinda funny. I also recently learned that I have, Ehlers Danlos syndrome as well Ehlers goes hand in hand with all the other connective tissue things.

Scott Benner (5:22)

I was gonna say how do you find that, but that's not what I mean. Like, what are the impacts of that for you?

Sarah (5:26)

Right? I mean, everybody here is hypermobile EDS and thinks that we can do backbends. I'm just gonna tell you my knees say that that is a big fat lie. I can't do anything hyper mobile mobile whatsoever. It's more so just the connective tissue.

Sarah (5:41)

So I have a lot of gut issues. I have, gosh, a lot of joint pain, musculoskeletal pain. You can hear I kinda have a vocal fry right now, which that just kind of comes and goes when the weather changes. Just a lot of very weird things. I hemorrhage after birth, almost died with my daughter, actually.

Sarah (6:05)

So that was good times. So safe to say I'm done with three. But on the day to day, I really don't have time to notice a lot of my symptoms, to be totally honest with you. It's generally whenever I stop moving that I can really feel that things aren't normal.

Scott Benner (6:24)

How do you get the diagnosis for the Ehlers Danlos?

Sarah (6:28)

It's essentially just a checklist of of symptoms. And with the other connective tissue disorders that I have, I have mixed connective tissue disease, which is like a buffet of different autoimmune diseases where how it was explained to me is you don't have enough of one to be completely solely diagnosed as that. It's kind of touch a touch of every single one of them, so it's kind of a blanket diagnosis. The Ehlers Danlos was just thrown in there recently by my rheumatologist.

Scott Benner (6:57)

And what do they tell you to do? Like, support the support your joints by building a muscle around it kind

Sarah (7:04)

of thing? Yeah. I guess. Yeah.

Scott Benner (7:06)

I guess.

Sarah (7:06)

I guess. They really have until it's one of those things that they're like, oh, here you go. Good luck. See you later. Let me know if you have problems.

Sarah (7:14)

But I do a lot of I try as, you know, as often as I can with three kids and all the work things that I have going on to go and get regular massage therapy, and I do a lot of red light therapy. And I'm really good at just listening to when my body says, okay. It's time to sit your ass down for a day. That's really how I manage it.

Scott Benner (7:37)

Do you have a list of things that actually help, or do you just think there are things that are offsetting a little bit?

Sarah (7:43)

I think mainly just taking the time to be horizontal, like, I like to call it. Mhmm. And just actually get good rest and good sleep because as you know, we don't sleep a lot as type one diabetic parents. Yeah. Or I don't anyway.

Sarah (7:58)

If somebody has any tips for that as a single parent, please reach out to me, but I haven't figured out how to master that just quite yet.

Navigating Pain and Medical Marijuana

Scott Benner (8:06)

Xanax? I I is

Sarah (8:07)

that good? Shoot. I, can I talk about

Scott Benner (8:12)

Talk about

Sarah (8:12)

talk about?

Scott Benner (8:13)

You can talk about whatever you want. Oh, I like when people get whispery. What are you gonna tell me?

Sarah (8:16)

Sorry. Well, I'm California sober.

Scott Benner (8:18)

Oh, I gotcha.

Sarah (8:20)

I can't drink alcohol. I don't like drink I don't like drinking alcohol. I used to love it, of course, growing up, but not growing up. That makes me sound like I was, like, 15. And, I mean, maybe

Scott Benner (8:30)

Scott, I started drinking when I was nine.

Sarah (8:32)

Sorry, mom. Sorry, dad. No. We had field I'm from the Midwest, so we had field parties here. So when I was at friends' houses, we were absolutely near death in a field somewhere.

Sarah (8:44)

All that being said

Scott Benner (8:45)

I'm at Kathy's house, kind of. Right.

Sarah (8:48)

Yeah. Like, we're doing homework. Duh. And now now that I'm a parent, I'm like, oh my god, mom. Were you

Scott Benner (8:54)

We paying attention?

Sarah (8:55)

Completely, like, unaware, blissfully unaware, or did you just not do that whenever you were 15?

Scott Benner (9:04)

How old are you?

Sarah (9:05)

I'm I'll be 37 this year.

Scott Benner (9:07)

So This is in the eighties?

Sarah (9:09)

No. No. Like no. Nineties? Nineties.

Sarah (9:12)

Yeah. Nineties, early two thousands. So

Scott Benner (9:14)

Oh my gosh. Yeah. Yeah. Yeah. Yeah.

Scott Benner (9:16)

Okay. Alright. I know. And your mom didn't know?

Sarah (9:19)

No. I don't know if she knew or if she was just too busy with her own stuff. So I have a theory on that as well, not to dive off into another subject, but I think my age group, we were really the first people who had mothers that worked outside of the home primarily full time.

Scott Benner (9:34)

Oh, okay.

Sarah (9:35)

So I think that has a lot to do with a lot of things anymore, my age group of people. But I don't again, I don't know if she was just too busy. You know? And we were we were grandparent kids. So we got off my both my parents worked full time.

Sarah (9:51)

My dad's an entrepreneur. My mom is a nurse. And we, we, you know, we got off the bus at my grandparents' house every day, and we were there until they were ready to come get us for dinner. So

Scott Benner (10:03)

How young were you the first time you were blackout drunk in a field?

Sarah (10:06)

Oh god. Maybe 16.

Scott Benner (10:09)

Okay.

Sarah (10:10)

But I was very responsible. I will say that. I never drove. That was I I I am kind of a so with all of the back to the autoimmune things, I have mast cell activation syndrome as well. So I have histamine issues, which, I get really carsick, and I have to drive everywhere.

Sarah (10:27)

So there's no passenger princess for me in any time of my life. I am the driver. So anytime my friends wanted to go somewhere, I basically had to drive. So unless we were staying staying in that field or staying at a property on that field, we I I didn't drink. I drove.

Scott Benner (10:44)

Sarah, please tell me how many times you've woken up the next day in a field.

Sarah (10:48)

Less than five.

Scott Benner (10:49)

That's not bad. Not a bad number.

Sarah (10:51)

Not for the Midwest. I don't feel like it is.

Scott Benner (10:53)

For the Midwest.

Sarah (10:54)

That's, like, our backbone.

Scott Benner (10:55)

You're like, Scott, I avoided fentanyl. I am a success Okay.

Sarah (10:59)

I am. For sure. Absolutely. So but yeah. So, I mean, I microdose marijuana medically.

Sarah (11:07)

It's legal where I'm at, recreational and medical. That's basically how I combat a lot of things

Scott Benner (11:15)

That's what

Sarah (11:16)

I medically for myself.

Scott Benner (11:17)

What did you find that helps you, and and what are you doing?

Sarah (11:21)

Basically, just that.

Scott Benner (11:22)

So, like, what do you, like, hit a pen a couple times a day, or how do you do

Sarah (11:25)

it? I have a I have a vape pen. I don't really know that I love the vaping idea, but with three kids, they don't know what it is, but they know when I feel better, if that makes any sense. I'm not like, hey. Mom's gonna go to the garage.

Sarah (11:39)

Like, I do it when they're not around, of course. Mhmm. And, you know, just for anyone listening concerned with my driving skills, I never do it before I have to go anywhere or drive. So always safe. Never sorry.

Scott Benner (11:49)

Have you tried the, I'm gonna use the wrong word. But they're the they're the devices that just it they superheat it very quickly. It doesn't burn.

Sarah (11:58)

Is it the RSO?

Scott Benner (12:00)

I don't know what it's called. I can find it.

Sarah (12:02)

Dab bin? No. I feel so ghetto saying all these cool words.

Scott Benner (12:08)

You're like you're like, I just want everyone to know I'm not as cool as I may sound in this moment.

Sarah (12:11)

Not, guys. Sorry.

Scott Benner (12:13)

Like second. So there's a way so you're so there's vaping. Right?

Sarah (12:18)

Uh-huh.

Scott Benner (12:18)

But there's also

Sarah (12:20)

I think it's a dab pen. I think that's what you're thinking of. Or, like, resin or something?

Scott Benner (12:23)

No. It's not. It's, I'm sorry.

Sarah (12:27)

No. You're good.

Scott Benner (12:28)

The smokers out there are like, you're this you're terrible.

Sarah (12:30)

Screaming it at You're the

Scott Benner (12:31)

terrible at this, Scott. Hold on a second.

Sarah (12:33)

Yeah. Welcome to, clearly. I'm, like, a, you know, almost daily user for sleep at least, and they're like, come on. Do you not know what you're talking about? I don't.

Sarah (12:42)

I really don't. Just like, hey. Here's a cool flavored gummy that's gonna help me not feel like death tomorrow.

Scott Benner (12:49)

My Google search is so bad that I just got back a torch that's meant to burn weeds in a field.

Sarah (12:54)

Oh my gosh.

Scott Benner (12:55)

That's hilarious.

Sarah (12:57)

It's like, yeah. This guy's never used in his life.

Scott Benner (13:00)

Not. No one is talking.

Sarah (13:02)

That's hysterical.

Scott Benner (13:04)

Google's laughing. Yeah. So I'm gonna figure out what it is, but I'll get back to you on that. So so that's what you do, and that helps you.

Sarah (13:12)

Yeah. It does. Otherwise, I would have to be on you know, they've they've tried to put me on basically, like, a chemo pill for my lupus. And I am which is kind of hilarious, and I'm very anti big pharma, which, of course, I would get a child, you know, that has a lifetime dependence on big pharma to stay alive. So that was kind of a funny joke.

Sarah (13:35)

So I don't I don't like to do I don't like I don't like prescriptions. I don't like medication. So I try and do everything as holistic as possible that I can for myself.

Scott Benner (13:45)

How do you end up scoring that circle exactly? Like, you have a feeling about about the industry, but now you're you are very tied to it.

Sarah (13:54)

Yes. So, actually, again, I told you my mom's a nurse. So she, it's kinda funny. You know, I was very pro everything when I was growing up, and then COVID hit, and I just have a little bit more time to start looking into things. And there's a lot that they don't tell you before they stick stick your kids with things or feed you pills all all day long.

Scott Benner (14:20)

Can tell me that you got high during COVID and went down some sort of a rabbit hole?

Sarah (14:24)

Didn't actually I did not. No. I was not I went down a few rabbit holes, but I was I was actually pregnant during COVID. So no there was no no utilization of any of that during that time. But I actually just started that pretty much in, like, 2023 just for pain.

Scott Benner (14:42)

I have my answer, by the way.

Sarah (14:43)

Okay. Great.

Scott Benner (14:44)

What is it? It's a heat it's a vaporizer, but it's only heat.

Scott Benner (14:50)

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Scott Benner (15:21)

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Scott Benner (15:57)

When you think of a CGM and all the good that it brings in your life, is the first thing you think about, I love that I have to change it all the time? I love the warm up period every time I have to change it? I love that when I bump into a door frame, sometimes it gets ripped off. I love that the adhesive kinda gets mushy sometimes when I sweat and falls off. No. These are not the things that you love about a CGM.

Scott Benner (16:19)

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Scott Benner (16:56)

One year, one CGM. Interesting. And so where did I learn about this? I was watching a video one day about some kids who have seizures. Yeah.

Scott Benner (17:06)

And then they gave them weed.

Sarah (17:08)

Yeah. It's a miracle.

Scott Benner (17:10)

And it made their seizures go away.

Sarah (17:11)

Yeah. That doesn't surprise me.

Scott Benner (17:13)

But the kids have to smoke a lot to get rid of the seizures. Right? Like, it's a pretty no. It's again, you'd have to look into it to get the whole thing. But these are these are kids who are just, like like, they're having three, four hundred c like, mini seizures a day.

Scott Benner (17:25)

Right? Like, something crazy like that. So, I'm watching was interesting. And then, you know, somebody brought up, like, you know, we at first, we were doing it, but, you know, we didn't want the kids smoking.

Sarah (17:36)

Right.

Scott Benner (17:37)

And then they brought up these heat vaporizers. So in the course of that conversation, they mentioned one. It took me a while to Google to because I couldn't think of the name of it. But there's one I think it's called the Mighty or the Mighty Plus or something like that. And they just like, the flour goes in, and it quickly superheats it, and a vapor comes out that is not vapor and it's not smoke.

Scott Benner (18:01)

It's hard to like, I'm I I would have a hard time describing it.

Sarah (18:04)

Like steam almost?

Scott Benner (18:06)

I don't even know what to

Sarah (18:07)

say. Dry?

Scott Benner (18:08)

Yeah. It's dry. From what I I mean, from I I'd have to find the video.

Sarah (18:11)

Interesting.

Scott Benner (18:12)

Yeah. But but, nevertheless, like, it might be they pushed the button. I think it was heated in a couple of minutes. They hit it a few times, and then it cools down again. And you can do that a few times before it gets burnt, I guess, and you have to add more.

Scott Benner (18:26)

But there's this very small, like, tip of your pinky size amount of flour that goes into

Sarah (18:32)

it. Interesting. Yeah. I'll have to look into that.

Scott Benner (18:34)

Why

Sarah (18:34)

not? Yeah. Because, of course, like, I don't wanna be, you know, I'm by I I probably sound like one, but I am by no means, like, a stoner. You know? I just I I don't do this to get

Scott Benner (18:46)

It really provides you relief.

Sarah (18:48)

Off my ass. It it's the only thing that literally can keep me going because I'm not sleeping. My son my son is very, very sensitive still even after being diagnosed for five years.

Scott Benner (19:00)

Mhmm.

Sarah (19:01)

Like, he when when he hits 70, we've got, like, two minutes or he's at 40. Okay. It's wild.

Scott Benner (19:08)

What kind of devices is he using?

Sarah (19:10)

He is on the t slim pump, and he's on Dexcom.

Scott Benner (19:15)

Is he getting low often like that?

Sarah (19:17)

He gets low quite a bit, more than high. And, of course, you know,

Scott Benner (19:23)

Activity makes him low?

Sarah (19:27)

He is no. He it's just random. It's very weird. It's almost like like when a nondiabetic is hypoglycemic and just I mean, you're fine until you're not fine.

Scott Benner (19:37)

Mhmm.

Sarah (19:37)

That's kind of how he is. It's when we after we are under a 100, we are at 70 within less than five minutes, and then we're down to 40. So he's very it's very much so I call it it's like a fire alarm twenty four seven. So I live my life in fight or flight, which probably doesn't do well for my own health. But somehow, thank you, Jesus, by the grace of God, I'm still managing everything okay.

Scott Benner (20:03)

Yeah. Oh, well, we'll figure it all out as we go.

Sarah (20:06)

Yeah. It's fine. That's kind of like I said earlier, it is it is real life, not perfect. Yeah. So

Scott Benner (20:12)

Well, so far, nothing I've tried has gone perfectly. But I

Sarah (20:15)

I figure Me either.

Scott Benner (20:16)

One day, something's gotta work out.

Sarah (20:17)

Right? It's we're we're gonna get there someday.

Scott Benner (20:20)

But I don't I honestly don't think that's true.

Sarah (20:21)

Think Well, maybe listen, Scott. You gotta have faith. Okay?

Scott Benner (20:26)

I'm just gonna have faith that even if it's not perfect, I'll be okay.

Sarah (20:29)

Yes. Yes.

Scott Benner (20:30)

I'm gonna get off this page now because I've been staring at this vaporizer for a while. But, apparently, they're they can be expensive.

Sarah (20:36)

Oh, I'm sure they can. It's it's all very expensive. But, again, like, I look at it as, you know, I don't wanna be on I definitely don't wanna wanna be on the the chemo pill. I don't.

Scott Benner (20:47)

The what?

Sarah (20:48)

It's like it's they call it a chemo pill. It's I can't even think of the name right now because that's hi. Have lupus brain. My brain is not normal. I can't think of it.

Sarah (20:57)

Somebody is yelling into the the radio right now what it is. I can't think about it. Hold on. Let me look this up. Chemo pill for lupus.

Sarah (21:09)

Okay. It Citoxin? It's called Cell cell Citoxin. Citoxin. Yeah.

Sarah (21:16)

It's it's essentially they just immune suppress your immuno immuno immune system. Mhmm. And it kind of acts like chemo. So

Scott Benner (21:27)

And what's it supposed to do for the lupus?

Sarah (21:29)

I don't know because I stopped listening as soon as they say that word. I'm done. I'm out.

Scott Benner (21:34)

So I wonder if the TEGO would work for it.

Sarah (21:36)

I don't know. But they my all of my specialists are like, hey. You're good. We you're whatever you're doing is okay. As long as you're not feeling any worse, Like, we will stick to your plan.

Sarah (21:47)

I've been very fortunate to have specialists who actually listen to me. And most of the time, I'm very I'm very self aware and very aware of my body, which is a good thing and a bad thing, I think, sometimes. Yeah. Wish I had a little bit more of, like, a Pollyanna syndrome where I didn't know what was going on, but I think that's also the blessing and the curse of having a mother who's a nurse. I was, you know, diagnosing my friends with strep throat in the third grade in the hallway.

Sarah (22:17)

So all that being said, I I know what I I know where I need to go and what I need to do, and they are really open to listening to that and then kind of formulating a treatment plan around what I feel comfortable with.

Scott Benner (22:31)

So This thing here says the the it's it's called cytotoxin. It's the short name, but it's actually cyclophosphamide or maybe.

Sarah (22:42)

Mhmm.

Scott Benner (22:42)

It says here it's often used for three to six months to treat severe lupus complications. While it can be given via, VIV, it can also it's also available as an oral medication. Yeah. I I don't I guess it knocks down your immune system and stops the the attack, and then maybe it doesn't come back. Maybe the hope is it doesn't come back at the same strength.

Sarah (23:03)

And I will say it there are seasons of the year where I am in remission per blood work. Now if I actually believe that, maybe I got lucky on the day that they drew the blood, but I don't ever feel like I'm in complete remission, to be totally honest with you. But K. There are days and seasons and months, especially with the weather change, I can feel it in my bones and my body when a storm's going to come or the barometric pressure is going crazy with the weather. So I can kind of have a little bit of a heads up and know to kinda take it easy the next few days.

Scott Benner (23:42)

Do your kids have any other issues besides the type one?

Sarah (23:45)

They don't listen. No.

Scott Benner (23:47)

They don't.

Sarah (23:48)

Is that it? I think, like, that's a, general issue with children. No. My other two children are perfect, and my diabetic is perfect as well. Just that.

Scott Benner (23:58)

Yeah. There's no other, like, autoimmune stuff going on.

Sarah (24:01)

Nope. Zero. It's wild.

Scott Benner (24:04)

I hope that keeps on like that.

Sarah (24:05)

Yeah. I me too. Me too. Yeah. So and

A Chaotic Type 1 Diagnosis

Scott Benner (24:10)

Tell me about his diagnosis. What what were the first signs

Sarah (24:12)

of it? So he, goes to his dad lives in a different state, so he travels there for the summer. I have him the rest of the year. So March that would have been '21. We had a lot of stuff going on family wise.

Sarah (24:27)

I lost both my grandparents on my dad's side. The next day, I lost my brother in law's little brother in a very tragic accident, and it was just a lot of things happening. So I also sometimes wonder if maybe that contributed a little bit from just the stress response of seeing everybody else so stressed out because that's kind of when we started noticing behavioral issues with him. He is your typical firstborn. Well, I say that.

Sarah (24:56)

I'm a firstborn, and I don't act like this. My sister is more like me, more like the firstborn child in our scenario, but he does not like rocking the boat, does not talk back. He's very respectful. I am both of those things, by the way. Just my sister is probably going to be listening to this, and she will argue that.

Scott Benner (25:14)

I was gonna say, why are you dragging your sister into this? Go ahead. There you

Sarah (25:18)

My sister, she's great. They, he was having a lot of behavioral issues at school, just not listening, very combative, and that's just not him. So we kind of took all this into oh, and by the way, we were, building a house at this time as well. So it was a nightmare, just generally speaking. So life was kinda crazy.

Sarah (25:40)

So I thought maybe that was just him kind of acting out or whatever he was doing because of the life situation at the time. Well, turns out, he goes to his dad's for the summer and late summer. So it was July. His dad sends me a text and says, you know, hey. We're headed to we're headed to the ER.

Sarah (26:03)

We think he has a UTI. I'm like, oh, okay. That's interesting. I was actually setting up for one of my best friend's baby showers that I was hosting the next day, mind you. So I was to have, like, 40 people in my home that we had just moved into a month and a half before.

Sarah (26:22)

And there was a golf tournament that weekend that my significant other at the time was playing in as well. So it was just like a perfect storm, the worst weekend ever possible to have something like this come down on you. So I get a text about thirty minutes later and says his blood sugar is 790.

Scott Benner (26:42)

Oh.

Sarah (26:43)

Yeah. And I'm like, What? So my mom is actually at the house with me at this exact moment getting ready for the baby shower the next day. And she's like, oh my god. What are the symptoms?

Sarah (26:58)

He was wetting the bed. And, again, he was nine, so that's not, you know, typical of a nine year old at that point. Had never done that before. Was, you know, having excessive thirst, just the classic textbook stuff. But it's summer.

Sarah (27:15)

They're having fun. It's hot. You know, he's not used to being at his dad's beyond the summer, of course, like, holidays and stuff like that. And his dad and his stepmom were just kinda taking little mental notes here and there, and then they were like, well, maybe we should limit the water at night because maybe that's why maybe he's getting too much fluid intake before bed while it kept happening. So then they thought it was a UTI.

Sarah (27:40)

So all of this stuff was happening behind the scenes, and I didn't know. And I'm glad I didn't know, actually, in hindsight because I probably would have lost my stress wise just waiting for this to come down because, again, having a mother who's a nurse, I know too much about these things even if it has nothing to do with me. So I immediately, alarm bells went off of my head. He's this is diabetes. And sure enough, there it was.

Sarah (28:06)

And he was actually one of, a handful of cases that actually got to be sent home the night of diagnosis in at Vanderbilt Children's in Nashville. He was not in in DKA, which is wild to me. He was totally fine other than his blood sugar being crazy high and and the urination. So the doctor at Vandy Children's was like, this is probably one of five that I've ever sent home. So I was able to do the baby shower the next day, fly to Nashville right after that, and we spent the next few days in training at Vandy.

Scott Benner (28:51)

Listen. That's fascinating. But more fascinating, I've been trying to talk to my wife and then moving to Tennessee for about a year.

Sarah (28:56)

I miss Nashville so much, but it's so different than what it used to be. I will say that.

Scott Benner (29:00)

I was looking at a place that's, like, 30 east of Nashville.

Sarah (29:05)

Mhmm.

Scott Benner (29:06)

And the, cost of the property and, house is so much cheaper than here.

Sarah (29:13)

Where where are you at again?

Scott Benner (29:14)

In New Jersey.

Sarah (29:15)

That's where I was like, yeah. I thought you were up north. Yeah. Well, I'm I'm near Kansas City, so we have kind of a boom happening in Kansas City as well. So and I'm also in real estate.

Sarah (29:26)

So I get to kinda see all that fun stuff. But I will tell you Nashville is not the same Nashville as it was when I lived there.

Scott Benner (29:34)

I don't know what that means. I don't really care. I wanna be

Sarah (29:37)

You're like, I just wanna move to Tennessee, Sarah. Basically, it's it's turning into, like, a tiny LA. There are everything is stacked on top of each other. I think they had the most people move there per capita than any other state or any other city in the entire

Scott Benner (29:55)

United States. Where, like, the house would be on, like, 20 acres.

Sarah (29:58)

Oh, yeah. Like, Gallatin area.

Scott Benner (30:00)

I don't know. Somewhere around there. East. Yeah. And but still within, like, a forty five minute drive of the city if you needed it.

Sarah (30:06)

Yeah. Well, even that I mean, there's there's literally they just keep building up in the city.

Scott Benner (30:11)

Oh.

Sarah (30:11)

So everyone goes out those ways. So you might not even you know, you might have to go even further than that. I don't I

Scott Benner (30:19)

don't want telling you is also I don't know if people are aware of this or not. I don't wanna start a gold rush, but doesn't have what they call, income tax.

Sarah (30:28)

Yeah. I know. So I miss that heavily.

Scott Benner (30:30)

Yeah. I'm thinking that might be a nicer way to live.

Sarah (30:33)

Mhmm. I agree. That's all. Apparently, Missouri is on the road to that as well, so we will see.

Scott Benner (30:40)

Tell me about the humidity in Tennessee very quickly, though. Am I gonna be all soupy all summer long?

Sarah (30:45)

No. It's not bad. I have very, very, very naturally curly hair. And say I step out of a car in Florida, I look like Mufasa Mhmm. Or Howard Stern in about four seconds.

Scott Benner (30:57)

Gotcha.

Sarah (30:58)

Did not have that same issue in Tennessee.

Scott Benner (31:01)

I'm gonna I'm gonna I have a situation coming up here in about four or five weeks where I'm gonna go down to Atlanta and give a talk for touch by type one. I don't know if I'm supposed to say that. Whatever. And Now

Sarah (31:13)

everybody knows.

Scott Benner (31:14)

Well, now maybe I'm gonna drive to Atlanta and then come back up through Tennessee and take a look around.

Sarah (31:19)

You should. It's it's beautiful there. I will tell you that. It is beautiful.

Scott Benner (31:24)

Maybe I could drag the old lady with me.

Sarah (31:26)

You could. Just make it a little vacation.

Scott Benner (31:29)

Yeah. I can. If she heard me say that, by the way, it's not a thing I've ever called her in my life. I was trying to be I was trying to I was trying to be funny, but

Sarah (31:35)

her up.

Scott Benner (31:36)

If she no. I said my old lady. Like, she

Sarah (31:38)

old lady. Oh, I thought you just said lady.

Scott Benner (31:40)

No. I figured we would that back. We're driving south. I thought maybe I would start speaking more like that. Oh, okay.

Scott Benner (31:46)

But but

Sarah (31:46)

You have to start saying y'all for everything.

Scott Benner (31:49)

I'll do it. I don't care.

Sarah (31:50)

And a Coke is not just Coke. Coke is a blanket term for every single pop or soda, if that's what you call it. But we call it pop.

Scott Benner (31:59)

The only soda I drink is Diet Mountain Dew once in a while. I don't think Oh, yeah.

Sarah (32:03)

So you would you would order a Coke, and they would say what kind? And then you would say

Scott Benner (32:07)

Then I'd say Mountain Dew. Dew. Well, that seems like a waste of time, but okay.

Sarah (32:11)

It's very wild. Yeah. But everything is a Coke.

Scott Benner (32:13)

Alright. I'm go listen. You may have just talked me into a, into a weekend outing.

Sarah (32:17)

You're welcome.

Scott Benner (32:18)

Thank you.

Sarah (32:18)

I can send you recommendations. I don't know if any of them are still open because, again, it was decades when I used to live there.

Scott Benner (32:24)

Literally, just you saying the humidity wasn't that bad, Soulmate.

Sarah (32:27)

Yeah. It's it's beautiful. It really is. Everyone is so nice, but people are nice in Kansas City too.

Scott Benner (32:33)

So Is that Missouri or Kansas City?

Sarah (32:35)

Yes. Missouri. Yeah. We don't we don't talk about Kansas unless you live in Kansas.

Scott Benner (32:41)

I think I gave a talk in Kansas City once.

Sarah (32:44)

Did you?

Scott Benner (32:44)

Yeah. They took me to a a barbecue place.

Sarah (32:47)

Oh, of course. A barbecue place.

Scott Benner (32:49)

It was like when I pulled up, I thought for sure they were gonna dismember my body in this building.

Sarah (32:54)

Oh, yeah. Arthur Bryant's probably.

Scott Benner (32:56)

Oh, no kidding. You feel like you know where I'm talking.

Sarah (32:58)

Oh, 100%.

Scott Benner (32:59)

Along a train track?

Sarah (33:02)

Yeah. Either of that I'm pretty sure it's Arthur Bryant's, but it's it's definitely sketchy, but it's the best.

Scott Benner (33:07)

It was so good. Yeah. It's As I was walking into that room, I thought I might not leave here alive just because of what it looked like on the outside.

Sarah (33:16)

Yeah. That's it's close to yeah. It's close to prospect. So here yeah. That's about it.

Sarah (33:20)

That's

Scott Benner (33:20)

was very good if

Sarah (33:21)

I so good. You can't beat it.

Scott Benner (33:23)

Okay. Alright.

Sarah (33:24)

Can't beat it. Now I'm hungry. Thanks, Scott.

Scott Benner (33:26)

Mhmm. It's not my fault. I I'm just talking.

Sarah (33:29)

I know.

Scott Benner (33:30)

Okay. So this kid is diagnosed. Yep. And you have to, like, figure out how to take care of him.

Sarah (33:35)

Yeah. And I'm a psychopath. And So, whenever I go whenever I go and do things, it's the ADHD in me. I hyperfixate.

Scott Benner (33:45)

Okay.

Sarah (33:46)

And the endocrinologist, after he came back and we were established in Missouri, because, again, he was diagnosed in Tennessee, so we have two endocrinology teams. So he has one when he's there, and he has one when he's here. She literally had to look at me and say, hey. You're doing a fantastic job, but, like, you probably don't need to keep a notebook of every carpet that goes in his mouth anymore.

Scott Benner (34:11)

She'd tell you to chill out?

Sarah (34:13)

She was like, you need to calm down. I'm like, excuse me? I'm what do you mean I need to calm down? My kid could die at any given moment. And I I inevitably, I would feel the guilt of that.

Sarah (34:24)

Right? And she's like, yes. But it's okay.

Scott Benner (34:27)

You really think the kid's gonna die, though?

Sarah (34:30)

I don't now. I did then.

Scott Benner (34:32)

You did then?

Sarah (34:32)

Tell you what. Okay. Yes. I was so stressed out a few it was probably three months after he came back home, so it would have been the '21. I was so stressed out when I again, my significant other, we had an infant, and he was like, why don't we try and turn your notifications off for the night?

Sarah (34:53)

Just put it on do not disturb, but let's let the Dexcom ring through. I was like, okay. So I tried it. It didn't work, Scott. Oh, what do

Scott Benner (35:02)

you mean?

Sarah (35:03)

My daughter woke up bawling and screaming out of nowhere, which was so unlike her because she was a great sleeper. She woke up crying and screaming, and I just glanced over at my phone. He was at thirty eight.

Scott Benner (35:19)

How did your daughter know to be upset by this?

Sarah (35:21)

I don't know. It I I well

Scott Benner (35:24)

Is she a diabetic alert dog? The girl maybe.

Sarah (35:26)

She literally. Yeah. Well, yeah. Exactly. But, you know, she holds that over his head all the time.

Sarah (35:32)

Well, I kept you alive that one time, so you have to do x y z for me. Yeah. If it wasn't for her, I truly I know I I know a lot of people have different beliefs and stuff, but that was definitely a god thing for me.

Scott Benner (35:44)

So you're saying, like, a low blood sugar overnight kinda scared you into being Oh, I was terrified. Yeah.

Sarah (35:49)

Yeah. 38.

Scott Benner (35:51)

But how long ago was that?

Sarah (35:52)

Like, months after he was diagnosed.

Scott Benner (35:54)

So how long ago since now?

Sarah (35:55)

Five years.

Scott Benner (35:56)

And has it happened since then?

Sarah (35:58)

No. Because I never shut my phone off.

Scott Benner (36:00)

Is that why it doesn't happen?

Sarah (36:02)

Yeah. Are you sure? I don't sleep. Oh, 100%.

Scott Benner (36:05)

How many 30 eights do you save before they happen?

Sarah (36:09)

About probably one or two a month.

Scott Benner (36:12)

I think you're doing oh, I almost said, I words that people would be upset for me. I think you're doing something wrong.

Sarah (36:17)

Yeah. So I I always thought that too. But his, again, his endocrinology teams both say, like, this is just his body. He's just very it's very weird when he sleeps.

The Unpredictability of Teen Growth Spurts

Sarah (36:28)

He also should note at 14, he is six foot two and a hundred and ninety pounds. The kid is growing up. An adult.

Scott Benner (36:37)

Yeah. Wait. So Wait. Hold on a second. You have a six two hundred and ninety pound half Mexican kid?

Sarah (36:43)

He does. He's he's he looks white.

Scott Benner (36:45)

No. I was like, how did that happen?

Sarah (36:47)

He's blonde.

Scott Benner (36:47)

Yeah. I I know. And I have a number of Mexican friends. They are very short people, generally speaking.

Sarah (36:52)

So his dad is small, but my my side is where he gets the height from. Okay. My dad's six six. He shrunk a little, so maybe he's six five now. My sister is six one, and then we have my mother who is, like, five foot in heels.

Sarah (37:06)

So I am down here at five seven.

Scott Benner (37:08)

So height from your size, you're tall too. Okay. And, like, you are five seven for a girl

Sarah (37:14)

is height. Think that is a myth. I don't feel tall. I feel short.

Scott Benner (37:17)

Well, just cause you don't feel tall doesn't mean you're not tall. Five seven for a woman is, I think, a fairly tall height for I mean

Sarah (37:24)

Well, thank you. Generous.

Scott Benner (37:26)

I didn't I wasn't trying to give you a compliment. I just think

Sarah (37:28)

it I'm gonna take it as that because I feel short. So

Scott Benner (37:32)

No. Do you know women that are taller than you?

Sarah (37:34)

Oh, yeah.

Scott Benner (37:35)

Are they in your family? Just like a lot of tall people in your family?

Sarah (37:38)

Yes. Yeah. My dad's one of nine or eight. I can't remember. There's too many of them.

Sarah (37:43)

Catholics. Yeah. My my dad's side is so tall. We used to joke. My my grandpa my dad's dad was, like, maybe five seven, and my dad's mom was over six foot.

Scott Benner (37:56)

So what what are the doctors telling you? Like, is he just growing a lot? Do you think it's like

Sarah (38:00)

I just think that he just goes through these weird spurts. And nighttime after he was diagnosed, after that first scare, that night nighttime was pretty steady because of the growth hormone, I think, that was kicking in.

Scott Benner (38:17)

What's your target set out on the what'd you say? You have t slim? Yeah. He's t slim. What's the target set at?

Sarah (38:23)

One ten.

Scott Benner (38:25)

Have you tried making it, like, higher overnight?

Sarah (38:28)

Yes. We have. And he still goes low.

Scott Benner (38:30)

Okay. There's gotta be a pattern to this. Is it

Sarah (38:33)

I know.

Scott Benner (38:33)

A certain meal that gets a big bolus earlier in the evening?

Sarah (38:36)

That's exactly why, Scott. That's exactly why I kept my little handy dandy notebook that the endocrinologist told me I was a psychopath for having, basically.

Scott Benner (38:45)

Do you still carry it?

Sarah (38:46)

No. Hell no.

Scott Benner (38:47)

No. You're done with the notebook now.

Sarah (38:49)

No. I'm done. You know what I've done? I have I everyone should be very proud of me listening because I am no longer a psycho with his management. He is, like I said, 14.

Sarah (39:01)

The kid is incredible at managing his own care during the day. I can't say enough about him. He's so responsible. I have never had I'm sure we'll still get there. Nobody scream at me through the phone, but we have never had the woe is me.

Sarah (39:20)

We have never had why me. We have never had rebellion. It's insane. He is a dream. Now if this would have been my middle child, I would have no hair right now.

Scott Benner (39:32)

Well but wait. Wait. For the lows, how about, like, like, a bunch of activity earlier in the day before it happens? Like, look earlier in the day.

Sarah (39:41)

No. Nothing. Nothing. He no. He is he is not a he's not an active he's not an he's not an inactive child.

Sarah (39:50)

He's not an active child. Scott is

Scott Benner (39:52)

not active. He sits very still.

Sarah (39:53)

Scott, he likes to sit on the computer. He's a gaming child, loves three d printing. He's very nerdy. Yeah. He's I mean, he's not out running or playing sports.

Scott Benner (40:07)

The giant six two nerd? Is that what you're telling me?

Sarah (40:09)

Yes. I'm like, oh my god. There goes all of my dreams being an NBA parent.

Scott Benner (40:13)

I didn't know they came tall, and six two is not gonna get you in the NBA anymore, by the way.

Sarah (40:17)

Yeah. Supposed to mind you, he's just turned 14. He's supposed to be, like, six seven.

Scott Benner (40:22)

Oh, well, made

Sarah (40:22)

him Six seven. Maybe we

Scott Benner (40:23)

maybe he could still be maybe he could be taught still.

Sarah (40:26)

I I he has no coordination. It's very sad. Lost his heart. Yeah.

Scott Benner (40:32)

He has no coordination.

Sarah (40:33)

You, we have no coordination. He doesn't. He can I mean, he can operate a VR headset like a champ?

Scott Benner (40:40)

Good with that stuff.

Sarah (40:42)

Throw a ball at that kid, and it's it's not happening.

Scott Benner (40:44)

Gonna hit him?

Sarah (40:45)

But yeah. He's yes. He is amazing. Has no interest in any sports or physical anything.

Scott Benner (40:52)

Yeah. Whatever.

Sarah (40:53)

So it's okay.

Scott Benner (40:54)

My kid's incredibly athletic, and I don't know if it matters one way or the other.

Sarah (40:57)

So I really don't either. I'm like, cool. Just learn how to, like, do computer stuff, and then you'll be great. He's very into video games. Just loves that.

Sarah (41:05)

So I try, I tried to get him into sports when he was younger, prediabetes, and it just wasn't happening. So I just shelved it and said, okay.

Scott Benner (41:13)

What's he eat? Like, what's his diet like?

Sarah (41:15)

Like a typical 14 year old boy.

Scott Benner (41:17)

I don't know what that means. You have to tell me.

Sarah (41:19)

Every, like, hour, he's eating almost a full meal. He like, you can't get the kid enough food throughout the day.

Scott Benner (41:25)

Okay.

Sarah (41:26)

But he's in range about 80% outside of the crazy lows.

Scott Benner (41:30)

Yeah. No. It sounds it sounds like he does a good job. Like,

Sarah (41:32)

He's amazing.

Scott Benner (41:33)

What what I mean, like, is it a lot of processed food? Is it a lot of whole food? Like, does he

Sarah (41:37)

eat No. We eat no. We eat a lot of whole foods. He does have a few food aversions, but he eats a ton of protein. And, course, you know, we account for that thanks to you teaching me that in the beginning.

Scott Benner (41:49)

Wait. I didn't know you were gonna say something nice about me. That's awesome.

Sarah (41:51)

Yes. You're welcome. See, now that was actually a compliment. So now you can rewind and tell everybody that you called me tall to be nice.

Scott Benner (41:58)

Well, I I didn't. I I don't think that's necessary.

Sarah (42:01)

You're supposed to pretend.

Scott Benner (42:02)

No. I'm I'm I'm not gonna not five seven.

Sarah (42:04)

Okay.

Scott Benner (42:05)

Mean, you know, five seven's a nice height is what I'm saying.

Sarah (42:09)

Okay. Okay. Yeah. Tall. Take it.

Sarah (42:10)

But I'll still give you the compliment. How about that?

Scott Benner (42:12)

I'm just gonna take the compliment no matter what. Okay. Yeah. Cool. We'll

Sarah (42:16)

go with that. Thank you. Yeah. So it's it's really weird. There's no pattern.

Sarah (42:19)

And, again, we I mean, we have talked this through so many times, and it just is what it is. Now it's not an every night thing, like I said. So, like, last night, for instance and the weather's changing here, so that always affects him too, which is weird to me. But

Scott Benner (42:38)

The warmer weather

Sarah (42:40)

Just the change. So is Yes. How? I I don't know. It's it doesn't mean you

Scott Benner (42:46)

change the lower, more variable?

Sarah (42:48)

It's an absolute it's an absolute yes. It's a variable. So we could do the same thing four days in a row, the same foods, the same times. And if the weather is changing on that day or the day before or the day after, it's wild.

Scott Benner (43:02)

I hear you.

Sarah (43:03)

Just very unpredictable. So but we're good. I have really shelved the idea of him having a perfect a one c. Mhmm. His is not terrible right now.

Sarah (43:17)

I think it's a seven Mhmm. Which is low for him. He's usually about a seven five. And, again, his team is very okay with that. Obviously, the perfectionist in me and it's not even it's not even a me thing.

Sarah (43:32)

It's a, I want to instill good habits in my child so that he can live a long life. Right? And that is the goal for me and for him. And that stresses me out sometimes because I can't control it as much as I would like. But I think, again, it's the puberty.

Sarah (43:50)

It's it's the excessive growth because he's grown. He's probably grown a foot in the last year.

Scott Benner (43:59)

Okay.

Sarah (44:00)

And it just it just keeps going.

Scott Benner (44:02)

I'm happy that everything feels good and that you found, like, balance and everything like that.

Sarah (44:08)

Yeah. Yeah.

Scott Benner (44:08)

When you were putting all of your effort into it, where was his a one c?

Sarah (44:12)

Like, a 6.5.

Scott Benner (44:14)

Okay. And so he's maybe a half a point to a point higher on his own. But are you completely out of it at this point?

Sarah (44:21)

I'm not completely are you kidding? I mean, I'm still neurotic, but no. I mean, he's only 14. He shouldn't be completely on his own Yeah.

Scott Benner (44:28)

I know.

Sarah (44:28)

In my opinion.

Scott Benner (44:29)

What's the difference between a seven five and a six five?

Sarah (44:31)

A number?

Scott Benner (44:32)

No. I mean, as far as, like, where you're putting effort or where you're not getting paid

Sarah (44:36)

back or whatever. Literally I was literally charting everything. We were weighing food. It was insane.

Scott Benner (44:43)

Charting everything, weighing food. But, I mean, he must eat the same stuff over and over again. Right?

Sarah (44:47)

Not every day.

Scott Benner (44:48)

What is this? What's wrong with this cake? Can't he just eat the same thing over and over again so you know how the bowl is for?

Sarah (44:51)

He does that for lunch at school.

Scott Benner (44:54)

Okay. Do lunches go well?

Sarah (44:56)

Lunches are good. Yep. Breakfast, sometimes it's not great, but we have kind of dialed that in a little bit more the last year.

Scott Benner (45:06)

Mhmm.

Sarah (45:07)

And You think you're just

Scott Benner (45:09)

not counting the carbs well enough?

Sarah (45:11)

No. I mean, I'm again, that's that's a habit that I have not lost from.

Scott Benner (45:16)

How about him when he's

Sarah (45:17)

Yes. He's very, very accurate with them as well.

Scott Benner (45:21)

He's not doing the, like, that's 30. That's 30. No. That's what he's not doing now. Okay.

Sarah (45:26)

He we utilize Alexa constantly. So if we're not looking it up on our phone, we're asking Alexa to look it up, And he will give her the exact portion amount that he I mean, he will measure out cereal if he's eating cereal.

Scott Benner (45:41)

And then

Sarah (45:42)

And milk.

Scott Benner (45:42)

There's a high blood sugar after the meal?

Sarah (45:45)

Not always. Sometimes. But it's generally a delay.

Scott Benner (45:52)

K. Ninety minutes later, we have a high blood sugar?

Sarah (45:54)

About two to three hours later.

Scott Benner (45:56)

Is that from fat, do you think?

Sarah (45:58)

Maybe. I mean, he is not, like, a vitamin d milk kid. He's, like, a one or two percenter. So

Scott Benner (46:05)

Okay.

Sarah (46:06)

I don't know that that's the issue. I I don't know. He is and it confuses his, like I said, his endocrinology team as well as I was like, yeah. They just don't like, they can't figure it out. His patterns don't make any sense.

Sarah (46:18)

But I am okay with that at this point.

Scott Benner (46:21)

Yeah. No. I know.

Sarah (46:22)

In his life.

Scott Benner (46:23)

I'm I feel like I'm on this too long. But

Sarah (46:26)

No. You're good. No. I love I love the, I love the pushback. I love a challenge, but I wish I had the answer because I don't.

Scott Benner (46:33)

No. I mean, if you had the answer, it wouldn't be like that.

Sarah (46:35)

Exactly.

Scott Benner (46:35)

Yeah. Yeah. True. But I'm just wondering, like, what it is

Sarah (46:37)

we're like, what missing. Yeah. What's being missed. I wonder that all the time.

Scott Benner (46:42)

And is it about his growth? Is has it been his whole life with diabetes or just more recently?

Sarah (46:48)

Well, no. He started he was pretty normal growth pattern until he was about 12. So he's grown significantly in the last two and a half years. What's that what's that shoe do you wear, Scott? 12.

Sarah (47:06)

He is a 12 at 14.

Scott Benner (47:10)

Oh, does he trip a lot?

Sarah (47:12)

No. But, man, they sound like bored slapping the floor when he walks. The kid's huge is my point. So I don't know if his body just can't calibrate itself or what the deal is, but we're growing rapidly.

Scott Benner (47:29)

Yeah. I I'll tell you the worst thing about having a Bigfoot is that when you find a shoe you like, usually they only have, like, two pairs of them. And if something and then they're usually gone by the time you go to pick them.

Sarah (47:39)

Right. Yeah.

Scott Benner (47:40)

And you're left with whatever's left. Now the Internet has fixed that a little bit. Can kinda order stuff.

Sarah (47:43)

But Of course.

Scott Benner (47:44)

Back when you had to go to a shoe store, kids, Scotty never got the shoes he wanted. How could intense growth impact the blood sugar of a 14 year old boy? And I said, like a foot of height. And it says, growing a foot is an absolutely massive growth spurt. The kind of rapid change puts a 14 year old boy's body through an intense physiological marathon, packs how the body handles blood sugar primarily due to hormones driving all the growth.

Scott Benner (48:09)

To grow that rapidly, pituitary gland is pumping out massive amounts of growth hormone alongside a surge in pubertal hormones like testosterone. Growth hormone naturally acts as an antagonist to insulin. Insulin's job is to act like, like, sensitivity during peak puberty, intense growth spurts as a teenager home. I didn't tell it on purpose that he has type one at first. So now I'm gonna tell

Sarah (48:33)

him that.

Scott Benner (48:34)

The teenager without any underlying metabolic or autoimmune issues, the blood sugar itself won't actually rise. Obviously, the body recognizes this. But okay. The changes in the picture since pancreas cannot produce extra insulin needs. This is about skyrocketing insulin needs, dawn phenomenon overdrive.

Scott Benner (48:52)

Growth hormone is primary released in heavy pulses while we're in deep sleep. Extreme unpredictability growth does not happen in smooth city lines. A 100 factor. Okay. Hold on.

Scott Benner (49:02)

This kid gets really low a few times a month during sleep.

Sarah (49:11)

Mhmm.

Scott Benner (49:12)

I mean, I don't know the answer. But if Vanderbilt doesn't know, let's find out if the Internet does.

Sarah (49:16)

Yeah. Me either.

Scott Benner (49:18)

Tried to get Arden to go there for her, to consider Vanderbilt for her

Sarah (49:22)

Oh, yeah. First of

Scott Benner (49:23)

for a post grad degree. But it is very expensive, so I do

Sarah (49:26)

like It is.

Scott Benner (49:27)

I do like the one she chose.

Sarah (49:28)

It's expensive.

Scott Benner (49:30)

Okay. So it might seem contradictory since the growth spurt is famous for causing stubborn highs, but at the same time, intense growth is very often the direct culprit behind the severe unpredictable overnight lows. The massive growth spurt in making his overnight numbers suddenly drops out from under him. So growing oh, I see. So the hormones and the growth all that stuff drives up need.

Sarah (49:54)

Yes. It's kind of fighting each other.

Scott Benner (49:56)

The algorithm is fighting back with more insulin, which is keeping him, you know, where he's at.

Sarah (50:01)

Yep. And then Plummets.

Scott Benner (50:04)

Yes. Then a 14 year old boy growing that rapidly is massive metabolism. If he's, say hours later in the middle of the night, his body will try to rebuild those depleted muscle stores from the day, pulling sugar directly out of his bloodstream, delayed effect combined with his nighttime insulin is class is it about a 2AM collapse?

Sarah (50:21)

It's about three. Yeah.

Scott Benner (50:22)

Three. Okay. Building bone and muscle takes an astronomical amount of calories. Okay. So how would we combat this?

Scott Benner (50:34)

Again, I wouldn't just say. I'm asking. No. Yeah. I'm asking Gemini.

Scott Benner (50:39)

So I'm I'm not saying this is advice for anybody listening. I'm just trying to, like I mean, we've been listening to Sarah say, I don't know. I don't know. I don't know for a while. And then nobody else is helping her, so maybe and I don't know the answer.

Sarah (50:49)

So Yeah. I'm again, like well, and it's so hard as everybody knows too. You know, your endocrinologist doesn't live with your child. They just know what they know. So it's kinda one of those things that, yeah, he's they say he's doing great, and I think he is as well, but there's always room for improvement.

Sarah (51:08)

Right?

Scott Benner (51:09)

Can you feed him late at night? Like, something that'll sit in his stomach overnight a little bit?

Sarah (51:14)

We used to actually do, like, the little tiny you know, the individual sized Jif peanut butters?

Scott Benner (51:21)

Okay. Yeah.

Sarah (51:22)

We did that with a, with a protein milk, a Fairlife protein milk.

Scott Benner (51:26)

Did that work?

Sarah (51:27)

Every night before bed, it worked for a little bit, and then it stopped working.

Scott Benner (51:32)

Jesus. A like a really, like, slow dissolving granola bar or something like that.

Sarah (51:37)

Yeah. I don't know about that because the carbs are different. So the peanut butter with the fat and the protein really did help a little bit.

Scott Benner (51:44)

Yeah.

Sarah (51:44)

But, again, that was just a temporary thing. That worked for about a year.

Scott Benner (51:49)

Wow. Maybe it's so maybe this

Sarah (51:51)

is A load of peanut butter.

Scott Benner (51:54)

Can we call this episode load of peanut butter?

Sarah (51:56)

Yes. Absolutely.

Scott Benner (51:58)

I I

Sarah (52:01)

a psychopath with a shitload of peanut butter.

Scott Benner (52:03)

I bought ketchup at Costco the other day, and I thought, I may never buy it again in my life. Look at all this ketchup. Right? Yeah. And then I felt like I was saving money, but now I look at the ketchup on the counter or in the cabin.

Scott Benner (52:14)

I'm like, what was I doing? It's so

Sarah (52:16)

You got, like, a gigantic, like, concession stand three pump. Of them.

Scott Benner (52:20)

Of No. Like, three of them came with it. Like and I was like,

Sarah (52:23)

what do

Scott Benner (52:23)

we get it? But the price was so good.

Sarah (52:25)

I know. Nevertheless. Well, they make you think it is anyway.

Scott Benner (52:28)

Well, it was on that thing. Trust me. I can't I cannot be fooled.

Sarah (52:31)

Okay.

Scott Benner (52:32)

You can fool me about a lot of things. Not about being cheap. That I'm good at.

Sarah (52:35)

Ketchup and pasta.

Scott Benner (52:36)

Got it. I'm good I'm good at being cheap. Don't worry about that.

Sarah (52:38)

Got it.

Scott Benner (52:39)

Well, yeah. I mean, my my only thought here is that maybe as the growth levels out, this problem just sort of dissipates.

Sarah (52:46)

I hope so. I can only hope and pray that that happens.

Scott Benner (52:49)

No. It's scary. Especially if you've already, you know, had a scary event.

Sarah (52:52)

Yeah. It's scary. And, of course, you know, I'm on high alert for that. But, also, I have I have two other kids.

Scott Benner (52:59)

Yeah.

Sarah (52:59)

So, I mean, I I

Scott Benner (53:02)

you know, I

Sarah (53:03)

can't yeah. I'm busy, and I have demanding careers, plural.

Scott Benner (53:08)

Mhmm.

Sarah (53:09)

And, thankfully, you know, I could never work for anybody else, I don't think, with a child.

Scott Benner (53:17)

Because of the way your time's chopped up?

Sarah (53:18)

Yes. So I I feel for every single parent out there who goes somewhere to work every day in Clarkson and has a boss because I don't know that I could do it. Yeah. I really don't.

Scott Benner (53:29)

Are you with your youngest's father?

Sarah (53:32)

I'm not.

Scott Benner (53:33)

You're not? Okay. So then there's three. Yeah. And do is that a situation where two of the kids go one direction, one of the kids goes another direction sometimes too?

Scott Benner (53:41)

Exactly. It's a lot it's a lot of stuff. Yeah.

Sarah (53:43)

So I have like I said, I have my oldest full time except for the summer, and the other two are split throughout the week. Okay. So we do get a little bit of reprieve Wednesdays and Thursdays because it's just my oldest and I. So we call that our we call those our rest day our rest days and rest nights because we can actually we generally sit in silence. I'm not gonna lie to you because it's usually so quiet and busy with the other two kids around all the time.

Scott Benner (54:09)

Yeah. So Well, I was gonna say too, and you need that rest, you said earlier too.

Sarah (54:13)

Absolutely. Well, I take a lot of naps. But, again, I could never be employed by someone else other than myself ever again.

Scott Benner (54:20)

How often do you nap?

Sarah (54:22)

Oh, I'm napping every day for sure.

Scott Benner (54:24)

Do you have thyroid?

Sarah (54:26)

I forgot. I do. Yeah. I have Hashimoto's.

Scott Benner (54:27)

What's your TSH?

Sarah (54:29)

I don't know. It's been I actually just got the blood work done in January, and I've still not received those blood work results. So I don't know.

Scott Benner (54:37)

Three months ago. How is that possible?

Sarah (54:38)

Tell you. I don't know.

Scott Benner (54:40)

Let's call them, first of all.

Sarah (54:42)

I know. I'll I'll put it on the list, Scott.

Scott Benner (54:43)

Yeah. But slide it to the top though because I know. Like, what if and my point

Sarah (54:48)

I mean, I I'm I'm napping because I'm not sleeping.

Scott Benner (54:51)

At night?

Sarah (54:52)

Yes. Because I am on high alert twenty four seven.

Scott Benner (54:56)

You know this isn't, like, doable for long. Right?

Sarah (54:59)

It's not. No. I'm gonna probably fall over someday, and this will be why. And you're gonna say, oh, I told her.

Scott Benner (55:04)

I told that lady to go to sleep.

Sarah (55:05)

Told that lady to sleep.

Scott Benner (55:07)

I mean, can you not why don't we get a second like, a like, a a third party to track his blood sugar? Like, so you have an extra set of eyes overnight so

Sarah (55:17)

he can sleep a little bit. His dad does do that.

Scott Benner (55:20)

Okay.

Sarah (55:20)

He does do that, but that doesn't stop my brain from waking up every hour to check either. Yeah. I see. It's a a me problem for sure.

Scott Benner (55:29)

Yeah. I don't know. You poor ladies are you're in a quandary. I watched my wife had a meeting today. She was nervous about it.

Scott Benner (55:35)

Think she was asleep at, like, five in the morning. Yeah. I was like, what are you doing? Like, every time I got up to, like, a pee or turnover, I was like, she's just sitting there. I'm like, what is I don't ask her anymore.

Scott Benner (55:44)

She gets mad at me. I'm like, why are you awake? And she'll be like, g, Scott. Thanks for straightening this out for me. I shouldn't just go to sleep.

Scott Benner (55:52)

But I'm like, wait. You should, first of all.

Sarah (55:54)

Thanks for the advice.

Scott Benner (55:56)

Yeah. Yeah. Yeah. Exactly. But, yeah.

Scott Benner (55:58)

I don't know I don't know what happens.

Sarah (56:00)

Yeah. I don't know. But but, like, last night, for instance, we sometimes get the the rarity of actually I woke up for the first time this morning at 04:00, which technically is 03:00, which is the general time I wake up anyway in the middle of the night, at least every night. But daylight savings time, I got to be got to be 04:00 today.

Scott Benner (56:21)

I I don't think that counts, though. Think it just moved. The clock just moved.

Sarah (56:24)

Trying to trick myself into believing that it yes. So just let me let me live. Okay?

Scott Benner (56:29)

Is it is it believing you got another hour?

Sarah (56:31)

Just let me get this one. Okay?

Scott Benner (56:33)

That's so cool.

Sarah (56:34)

Trying to fool myself into thinking. But

Scott Benner (56:37)

Well, I'm sorry for you. It's a it's first of Well, it's a lot, though.

Sarah (56:40)

It is a lot, but I'm you know, it's just I have people all the time. How do you do all the things? What what other option do

Scott Benner (56:48)

I have? Saying, what else are supposed to do?

Sarah (56:50)

Yeah. Not

Scott Benner (56:51)

Right. Right. Well, is he gonna be okay? Like, you think he's a college kid?

Sarah (56:55)

I don't know. I don't I don't I don't even wanna go there in my brain yet. I am my next mental hurdle is driving.

Scott Benner (57:03)

Sarah's like, I'm too busy worrying about now. I can't worry about later.

Sarah (57:06)

Yeah. No. I yeah. It's funny. The world is literally on fire, Scott.

Sarah (57:11)

Like, let's just get through the day.

Scott Benner (57:13)

I just talked to a guy whose kid's only been diagnosed for a short time, and he's already worrying about twenty years from now.

Sarah (57:18)

Oh my god. No. I can't even I can't even think past twenty hours from now, most days.

Scott Benner (57:23)

Isn't it funny you both are panicking a bit about something different?

Sarah (57:26)

Just completely different. Yeah.

Scott Benner (57:27)

Right? That's really something.

Sarah (57:28)

Yeah. But I will say I have calmed down a lot. So

Scott Benner (57:31)

Can you do a little of the weed before the bed? Does that help the sleep?

Sarah (57:34)

I I do that mainly just so I don't wake up feeling like a tin man in the morning, but it does not do anything for my sleep anymore.

Scott Benner (57:42)

Sleep. Also, I would tell you that a lot of the stuff I've seen recently says that weed doesn't help you sleep. It has, like, an opposite effect.

Sarah (57:49)

Oh, cool.

Scott Benner (57:50)

But then there's so many people that say it does help them sleep. So where's that

Sarah (57:53)

coming from? Who knows? I think they just make things up anymore, honestly.

Scott Benner (57:57)

That I'm pretty sure about. Yeah. So

Sarah (58:00)

Someone somewhere is just making these things up.

Scott Benner (58:02)

They're like, we need content. Say something.

Sarah (58:04)

Right. Yeah.

Scott Benner (58:05)

Exactly. You know what my favorite thing is now around sports? People will make posts, You know, they're just trying to drive their accounts to make money with them. Right? But it's it's like, I it's not even important.

Scott Benner (58:18)

It's where do you live in Kansas City? It's like, you know, proposed trade Patrick Mahomes for this guy in New York. What do you think? And then you start reading it. You're like, my god.

Scott Benner (58:28)

Are they thinking of trading Patrick? You read it go, oh, no. This is just somebody said out loud. Like, what would you think of this? Yeah.

Scott Benner (58:33)

Everything is just rage bait in one way or

Sarah (58:35)

the other. Is rage bait. Yep. Because it gets it it it gets clicks, and it gets people pissed off in the comments, and then they start arguing with each other. And all that does is just monetize, monetize, monetize.

Scott Benner (58:47)

And it and it works on levels too because the because somebody gets tricked by it, and then somebody comes in, then that person starts, like, complaining. Then another person gets annoyed that they don't realize it's not real, then they yell at them for that. And then someone yells at that person for not being nice, and you have three different

Sarah (59:04)

It's a snowball.

Scott Benner (59:04)

Yeah. There's three different levels of rage off of one fake statement made out loud, and it just drives that thing to work and work and work, and they sell the ads on it. Yeah.

Sarah (59:14)

Sure does.

Scott Benner (59:15)

Fascinating, isn't it?

Sarah (59:16)

The system never stops. That's

Scott Benner (59:17)

for sure. It never stop. And you can't teach the world because there's always somebody in a different version of understanding of how all this works. You I agree. You can always hook in enough people to make it happen.

Sarah (59:28)

I agree.

Scott Benner (59:28)

Yeah. That was my favorite though. Like, when they make up stuff and they go Oh, yeah. They go, what do you think of this? And I'm like, wait.

Scott Benner (59:33)

What it would be like if somebody said, like, what you know, like, if I made a post and I said, I'm thinking that a a cuckoo bird should be allowed to marry a volcano. What do you think of that? People are like Yeah. Volcanoes and birds don't belong in marital bliss together.

Sarah (59:46)

They don't even get married.

Scott Benner (59:47)

Yeah. It's ridiculous. Birds don't even get married. And then and then somebody else would come in and be like, how would they even have sex? And then a third person would come in and say something like, you don't realize that this is just to rage bait you?

Scott Benner (59:58)

You're such an idiot. And then somebody's like, why would you call them an idiot?

Sarah (1:00:01)

When somebody's like, well, I hate I hate volcanoes.

Scott Benner (1:00:04)

Okay. Yeah. I don't like the holes in the top of them. What do you think of that? And it's just it's fascinating to watch that get

Sarah (1:00:11)

It is. People get

Scott Benner (1:00:12)

jerked around that way.

Sarah (1:00:12)

Is just, I mean, we fall we fall into it too. Hook, line, and sinker every time.

Scott Benner (1:00:18)

I just heard somebody say recently that we we used to think sex sold, but it's rage.

Sarah (1:00:23)

100%.

Scott Benner (1:00:24)

Yeah. Rage is what sells.

Sarah (1:00:25)

Arguments sell is what it is. Conflict.

Scott Benner (1:00:27)

Yeah. Really something is.

Sarah (1:00:29)

Differing opinions. All of it.

Scott Benner (1:00:31)

Yeah. Can't get I mean, you can't get anybody to argue about anything that's actually important either, which is interesting.

Sarah (1:00:36)

Of course not.

Scott Benner (1:00:36)

Yeah. That that Yeah.

Sarah (1:00:38)

I know.

Scott Benner (1:00:38)

It's You bring something important up, people are like, I don't have the energy for that.

Sarah (1:00:41)

I don't

Scott Benner (1:00:41)

wanna talk

Sarah (1:00:41)

about that. Okay. Cool.

Scott Benner (1:00:43)

But I'll tell you what. Those birds and those volcanoes, I have a lot of thoughts about this. I have a lot of thoughts about it.

Sarah (1:00:49)

Truly.

Scott Benner (1:00:50)

My goodness. Well, what are you gonna do? Are you planning on giving up? Are you planning on like, what's what are you what's your wait. I mean, this has only been a handful of years for the diabetes.

Scott Benner (1:01:01)

Right?

Sarah (1:01:01)

No. I'm I mean, I'm definitely not gonna give up.

Scott Benner (1:01:05)

Okay.

Sarah (1:01:05)

Probably just gonna continue to be you know, get more funny as the years go by because that's how I cope with things.

Scott Benner (1:01:11)

Yeah.

Sarah (1:01:12)

It's a disability at this point. But I don't know. I you know, hopefully, eventually, we'll find someone worthy of marrying again, and, you

Scott Benner (1:01:25)

know,

Sarah (1:01:25)

they are a light sleeper.

Scott Benner (1:01:28)

Hey, anybody. Listen. Sarah's willing to trade fun time for if you'll just let her sleep. Okay? Just let

Sarah (1:01:34)

me just let the girl sleep. Okay? And, like, maybe go have these on the bills or something. I cook really well. I'm really funny.

Sarah (1:01:43)

Well, I mean, that's, I guess, maybe a personal opinion, but some people think I'm funny. So, no, I really I really don't know. I think you

Scott Benner (1:01:51)

I didn't expect you to come from that angle. I'm sorry. You're like, I'm selling this Scott, I gotta get some sleep. Like, I'm like

Sarah (1:01:58)

I gotta sleep, man. No. Like, truly, I literally a few years ago, I asked for a night nurse for Christmas just for, like, a weekend.

Scott Benner (1:02:06)

Yeah. I hear you.

Sarah (1:02:07)

And my you know, he my parents I will say my parents help out a lot when they can. They also have their own lives, and my sister has children as well. So there's grandkids everywhere. But when possible, you know, my my mom, who is a nurse, but, you know, as anybody who's a nurse or in the medical field, it's totally different when it's your own relative. Your all of your medical training.

Sarah (1:02:29)

And, again, like, type one diabetes, especially juvenile, is something that's not necessarily I just totally blanked on what I was gonna say. Hi. Welcome, lupus, to the chat. The brain fog is lovely. I guess what I'm saying is it's not something that every single person in the medical field knows a ton about.

Sarah (1:02:46)

You don't they don't study that unless it's their specialty.

Scott Benner (1:02:50)

Could you go to your sister, for example, and explain your situation? And may maybe she already knows it.

Sarah (1:02:55)

She yes. She knows it.

Scott Benner (1:02:56)

And say to her, is there a world for the next month where on, like, I don't know, Thursday night at you know, for the next month. Could you be in charge of making sure he doesn't get too low? And I'm gonna shut my alarm off and only wake up if you call me. And then get your mom to take the next day.

Sarah (1:03:15)

She has little little children.

Scott Benner (1:03:17)

Yeah. I'm not asking her do it forever. I'm saying a couple of nights over a week just so you could kind of like

Sarah (1:03:22)

you ask her. She'll probably be listening to this.

Scott Benner (1:03:24)

I mean, I'm asking her right now. Like, say your sister, your mom, and then, I don't know, like, father's like, like, you know what mean? Like, pick three people in your life. Get one of the get the dads. Right?

Scott Benner (1:03:35)

Like Yeah. And get everybody to cover a day a week for four weeks, and just see if it can't just put you in a better place where you can find a way to sleep a little better. Yeah. Know You what I mean? Like, just to kinda break the cycle kinda thing.

Sarah (1:03:48)

I mean, I as I would love that. I just it's I don't know that that's a realistic ask.

Scott Benner (1:03:54)

What about this? Here you go. What if you sent that kid off to diabetes camp?

Sarah (1:04:01)

I would love that.

Scott Benner (1:04:02)

Alright.

Sarah (1:04:03)

That generally is when he's with his dad, though, for the summer, and he doesn't give up time.

Scott Benner (1:04:08)

So We have Okay.

Sarah (1:04:09)

We've had this conversation before. So I will say when he is summer is my time to rest and recoup.

Scott Benner (1:04:16)

I was gonna say because when he's with do you shut your alarms off then?

Sarah (1:04:19)

I don't shut them off, but I don't wake up as often.

Scott Benner (1:04:24)

Okay. Also waking up. And that helps, though.

Sarah (1:04:27)

Yeah. It does. It does. It's a twelve week kind of mental break

Scott Benner (1:04:33)

Okay.

Sarah (1:04:34)

For me. But, I mean, there's still, you know, the other weeks of the year.

Scott Benner (1:04:39)

I've I've I to do the math, but it's late in the day.

Sarah (1:04:41)

Me too. Was like, is it forty two?

Scott Benner (1:04:43)

I think it's forty five. Think it's I think it's, like, forty four.

Sarah (1:04:46)

Listen. I can sell houses. I can't

Scott Benner (1:04:48)

I can't How many day how many months are the weeks? Fifty is there fifty six weeks in a year?

Sarah (1:04:52)

I think it's is it fifty six or 52?

Scott Benner (1:04:54)

I think it's 52. So then you take months to turn it around with it says 40.

Sarah (1:04:58)

Oh, sure. Sure. Sure. Sure. It's too many.

Sarah (1:05:00)

We'll say that.

Scott Benner (1:05:01)

Right.

Sarah (1:05:01)

But yeah. No. I again, I I really do for as much as I have on my plate, I somehow and, again, I completely attribute that to Jesus for sure because, otherwise, there's no way that I could be doing all this and not drop dead.

The Sheepadoodle Pump Mishap

Scott Benner (1:05:17)

How many dogs do you have? Two. Why can we get rid of them?

Sarah (1:05:21)

So no. Funny story. One of them was purchased to be a diabetic alert dog, and he had to go through, like, a pretest, and he failed. So now he's just a dog.

Scott Benner (1:05:34)

Shouldn't you do that before you buy it?

Sarah (1:05:36)

Well, listen. He's a sheepadoodle, and they're supposed to be, like, one of the better ones for that. But, apparently, I got the one who

Scott Benner (1:05:45)

Your sheepadoodle's dumb? You have a dumb sheepadoodle?

Sarah (1:05:48)

I did. Yeah. I'm like, someone lied here in this bloodline. This is not true sheepadoodle behavior.

Scott Benner (1:05:54)

Sheepadummy is what you're saying.

Sarah (1:05:55)

Sheepadummy. Yeah. Absolutely. But they're great dogs. They really are.

Sarah (1:05:58)

If the kids love them, I would never get rid of them. Oh. And that really truly wouldn't take anything off of my plate.

Scott Benner (1:06:03)

Really?

Sarah (1:06:04)

No. I'd have to get rid of a kid, which not doing that either.

Scott Benner (1:06:07)

But if you were going to, which one? No. No. You already know which one?

Sarah (1:06:11)

Saying that. No. Okay. None of them.

Scott Benner (1:06:12)

She knows for sure which one. And so would never I didn't say you would. Didn't say you would. I said, you know which one comes to mind when I say that out loud.

Sarah (1:06:21)

None of them. I genuinely swear Alright. Could never get I love my children. They are without that's why I I have friends who don't have kids, and I'm like, what do you do with your life? I don't know.

Scott Benner (1:06:34)

They probably go on vacation with all the extra money they have.

Sarah (1:06:37)

Sleep.

Scott Benner (1:06:38)

And sleep. They're probably having sex, going on vacation, and buying cars. Don't you think?

Sarah (1:06:42)

Yeah. Right.

Scott Benner (1:06:43)

Yeah. I know. But Bastards.

Sarah (1:06:47)

I I just either I just I just can't imagine. I truly you know, don't get me wrong. It's it's difficult. Any any child being a parent, especially in this world, is difficult. But we know whether they have any medical issue or not.

Sarah (1:07:02)

But I can genuinely, 100%, wholeheartedly say I would not want to live life without my kids.

Scott Benner (1:07:09)

That's sweet.

Sarah (1:07:10)

So that is that is what

Scott Benner (1:07:12)

I mean, I think I feel the same. I'm I'm sure

Sarah (1:07:14)

I feel

Scott Benner (1:07:15)

I feel the same way. Yeah. Would definitely get rid the dogs, though. I spent way too much time with those dogs today already.

Sarah (1:07:20)

See, my dogs, they're so they they're sheba dummies. Like I said, they just kinda chill and run around and bark at the air and stuff like that. So It's just I Diabetic alert dog is not in either of their future, unfortunately. Oh, I have a funny story.

Scott Benner (1:07:34)

I'll take it.

Sarah (1:07:35)

Okay. So we disconnected our pump one day to but I don't know why. That is still a mystery. He never takes it off unless he's in the shower or in a swimming pool, and neither of those things were occurring. So I don't know what the hell he was doing Mhmm.

Sarah (1:07:55)

But he took it off. Comes to the realization that he doesn't have it. Can't find it. Like, what do you mean? Mhmm.

Sarah (1:08:04)

I don't know. It's gone. Like, okay. So we try and retrace our steps. Well, my mother had picked him up at school that day because I had a showing appointment.

Sarah (1:08:11)

She picked him up. She was home. She works remote half of the week, and she works in the office the other half. So luckily, it was one of those days where that's kind of how I have to schedule my life is around who can help when and where and, you know, do all the things. All that being said, they went and ran an errand directly after school was the UPS store and didn't know where it was at.

Sarah (1:08:34)

Well, he was I can't remember now. This was, like, a few months ago, a month or two ago. I can't remember if he was higher or lower, but something had triggered in my brain to say, okay. This is where his blood sugar was at. So he would have had to have either have done a correction or had to have a snack or something at this time.

Sarah (1:08:54)

So he had to have had it on him at this specific time is what I'm saying. Because if he wasn't getting his, you know, his background insulin, then he wouldn't it was low. Then he wouldn't have gone low. So we tried to narrow it down of where that could have been at that point. So it was about the time that they would have been at the UPS store.

Sarah (1:09:10)

So my middle child had a basketball game this evening, and I immediately fly over to the school. We look around we look around the the school parking lot. I drive to the UPS store. I've got people looking. I have called the principal.

Sarah (1:09:25)

I've called the janitors. I mean, his school is is not massive, but it's fairly big. And it's three three three floors, and I've got everybody and their mother looking for this freaking insulin pump. K?

Scott Benner (1:09:39)

Mhmm.

Sarah (1:09:40)

It had snowed it had snowed a few like, a foot and a half maybe a few days prior to this. So nobody is, like, looking outside because it's snow. You would have seen it, a black insulin pump in the snow. So I literally go to the basketball game an hour away from my middle child, come back, go pick up a friend, and he helped me look. We looked for two hours everywhere.

Sarah (1:10:06)

Couldn't find a damn thing. So, luckily, we have a friend here in town. I will say this. The community of people that the diabetic community has is amazing. That is the best thing.

Sarah (1:10:20)

I we're all in this club that none of us wanted to be in, but we're in it. And I'm so thankful that there is you know, it's it's one of those weird spots. It sucks that there are so many people who deal with the same stuff that I do every single day, but it also is nice to not be alone. Right? So there is a classmate of his who is on the Omnipod now, but she used to be on the t slim.

Sarah (1:10:42)

So I the school sends out a mass email with a picture of the the insulin pump, and she's like, oh my god. Hi. You know, what can I do? So hi, Kara. She listens to this.

Sarah (1:10:53)

Thank you so much. You're an angel, and I will never be able to repay you. So she's like, listen. We have we have her daughter's old, t slim. Let me bring it over.

Sarah (1:11:05)

I somehow was able to finagle the people at Tandem to wipe off her daughter as the owner. So we used that because we were two days away from warranty expiration when this happened.

Scott Benner (1:11:21)

Wait. Where was the pump? Was it the UPS store?

Sarah (1:11:24)

No. No. No. No. It was just Wait. Okay.

Sarah (1:11:26)

So, sheep of dummies over here, one of them grabbed it, buried it in the damn snow in the backyard. We found it a week later.

Scott Benner (1:11:35)

But your dog took the insulin pump and buried it in the snow? That's the opposite of being a good diabetes alert dog.

Sarah (1:11:40)

Like, what the hell? And I I don't even know how it survived because there was a full cartridge, and it was gone.

Scott Benner (1:11:46)

It's an anti alert dog is what you have there.

Sarah (1:11:48)

Literally. It's like the reverse.

Scott Benner (1:11:50)

Well, she might be, the episode So

Sarah (1:11:54)

There you go. There's my funny story. So I lit I mean, his school, bless her hearts. Everyone and their mother was looking for days. Everybody came into the nurse's office.

Sarah (1:12:05)

They had a reward for it because they thought somebody might have picked it up thinking it was some sort of Yeah. You know, game or

Scott Benner (1:12:13)

Instead, it was just your it was just a chew toy for

Sarah (1:12:15)

your dog. It was just the dog.

Scott Benner (1:12:16)

So ridiculous.

Sarah (1:12:18)

Okay. If if you're gonna buy a sheep noodle, make sure it's not from, you know?

Scott Benner (1:12:24)

I'm not doing that. I I don't I I've already made my mistake.

Sarah (1:12:27)

The craziest thing you've ever heard?

Scott Benner (1:12:29)

I it it is pretty funny. Yeah. Yeah.

Sarah (1:12:32)

Oh, it was funny after the fact.

Scott Benner (1:12:34)

Not Dory. And and it still worked after all that?

Sarah (1:12:37)

No. No? It's done. Yeah. So he is still using said friend's old pump because we're trying to decide now if he wants to get on Omnipod, Twist, or the Moby or stay with t slim.

Scott Benner (1:12:53)

And t slim's the pump he had at first. Yes. Tandem, what's wrong with you? Your pump can't withstand being buried in the snow for days.

Sarah (1:12:59)

I mean, come on. Yeah. Like, what if somebody lived in the Arctic or something? I don't know.

Scott Benner (1:13:04)

Too badder.

Sarah (1:13:05)

Really? Come on, Tandem.

Scott Benner (1:13:07)

Oh, that's so ridiculous. My god. Alright. Well, Sarah, you were delightful to speak to. I appreciate you taking the time to do this.

Sarah (1:13:13)

Yeah. Of course. Thanks for having me.

Scott Benner (1:13:14)

I enjoyed your ADHD.

Sarah (1:13:16)

Oh, well, thank you. It is very, evident, I'm sure, listening back to this probably. So

Scott Benner (1:13:21)

Please. I had a good time.

Sarah (1:13:22)

Okay. Well, me too. Good.

Scott Benner (1:13:24)

I do wanna say that I there was the one thing I looked at that I never brought up in the conversation because you brought up the chemo meds. Yes. And they're apparently, in the last couple of years, they're having a lot of success with something called CAR T

Sarah (1:13:38)

Okay.

Scott Benner (1:13:38)

For lupus and stuff like that. It might be worth, like, googling or doing a deep dive

Sarah (1:13:43)

somewhere I will for sure.

Scott Benner (1:13:44)

On more modern medications that do what that medication that you mentioned does. The there was a pretty long list. So I don't know if it's worth it would be worth your time or not.

Sarah (1:13:53)

Hey. I mean, anything is worth trying once at least.

Scott Benner (1:13:56)

So Yeah. I mean, if you're struggling that much.

Sarah (1:13:59)

Yeah. Yeah. I mean, again and I say, you know, it probably sounds like I'm struggling, but, I mean, we're surviving. We're we're not thriving ever. We're we're good.

Scott Benner (1:14:08)

Not thriving. Surviving. But, no, I mean Okay. I mean, like, joint pain, muscle pain. Yeah. Like, that kind of stuff sucks. You know what I mean?

Sarah (1:14:15)

It does suck, and it definitely makes, you know, all the all the running I have to do difficult. And

Scott Benner (1:14:22)

I mean, you're in the Midwest. Have you tried heroin?

Sarah (1:14:24)

No. I'm just teasing You know, Missouri has a few of the meth capitals of the world.

Scott Benner (1:14:29)

But And maybe some meth.

Sarah (1:14:31)

Haven't haven't reached that low point quite yet, and I hope that I never do.

Scott Benner (1:14:35)

No. I I'm I'm joking. Of course, no. Please, hey. Listen. Let me just say something. It should be obvious. Please don't use meth.

Sarah (1:14:41)

Please nobody use meth

Scott Benner (1:14:42)

Yeah.

Sarah (1:14:42)

Or heroin.

Scott Benner (1:14:43)

Yeah. Seriously. Let's avoid both of them. How's that sound?

Sarah (1:14:46)

So Alright.

Scott Benner (1:14:47)

So Yeah. Hold on one second for me. Okay? This was awesome. I appreciate your

Sarah (1:14:50)

Yeah. Thank you.

Outro & Sponsors

Scott Benner (1:14:51)

Yep. Hold on. Are you tired of getting a rash from your CGM adhesive? Give the Eversense three sixty five a try. Eversensecgm.com/juicebox.

Scott Benner (1:15:08)

Beautiful silicone that they use. It changes every day, keeps it fresh. Not only that, you only have to change the sensor once a year. So, I mean, that's better. Head now to tandemdiabetes.com/juicebox and check out today's sponsor, Tandem Diabetes Care.

Scott Benner (1:15:26)

I think you're gonna find exactly what you're looking for at that link, including a way to sign up and get started with the Tandem Mobi system. This episode was sponsored by Touched by Type one. I want you to go find them on Facebook, Instagram, and give them a follow, and then head to touchedbytype1.org where you're gonna learn all about their programs and resources for people with type one diabetes. Okay. Well, here we are at the end of the episode.

Scott Benner (1:15:54)

You're still with me? Thank you. I really do appreciate that. What else could you do for me? Why don't you tell a friend about the show or leave a five star review?

Scott Benner (1:16:03)

Maybe you could make sure you're following or subscribe in your podcast app, go to YouTube and follow me or Instagram, TikTok. Oh, gosh. Here's one. Make sure you're following the podcast in the private Facebook group as well as the public Facebook page. You don't wanna miss please, do you not know about the private group?

Scott Benner (1:16:23)

You have to join the private group. As of this recording, it has 74,000 members. They're active talking about diabetes. Whatever you need to know, there's a conversation happening in there right now. And I'm there all the time.

Scott Benner (1:16:36)

Tag me. I'll say hi. Check out my algorithm pumping series to help you make sense of automated insulin delivery systems like Omnipod five, Loop, Medtronic seven eighty g, Twist, Tandem Control IQ, and much more. Each episode will dive into the setup, features, and real world usage tips that can transform your daily type one diabetes management. We cut through the jargon, share personal experiences, and show you how these algorithms can simplify and streamline your care.

Scott Benner (1:17:05)

If you're curious about automated insulin pumping, go find the algorithm pumping series in the Juice Box podcast. Easiest way, juiceboxpodcast.com, and go up into the menu. Click on series, and it'll be right there. Have a podcast? Want it to sound fantastic?

Scott Benner (1:17:20)

Wrongwayrecording.com.

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#1837 Chris vs. Life - Part 2