Happy Birthday Arden
Today we celebrate ten years of happiness, memories and adventure with the greatest daughter that anyone could ask for!
Happy Birthday Arden!
JDRF appoints Derek Rapp as new President & CEO
From PR Newswire - http://www.prnewswire.com/news-releases/jdrf-appoints-derek-rapp-as-new-president--ceo-267933101.html
Derek Rapp
NEW YORK, July 21, 2014 /PRNewswire/ -- JDRF's International Board of Directors (IBOD) announced today the appointment of Derek Rapp, currently Vice Chair of the JDRF International Board of Directors, as its new President and CEO.
Rapp replaces Jeffrey Brewer who recently left his role as JDRF President and CEO since 2010. "Jeffrey Brewer has been a transformational CEO for JDRF," said John Brady, Chairman of the JDRF IBOD. "Because of his vision and leadership, we are on the verge of life-changing breakthroughs that will fundamentally improve the way people live with T1D. His relentless passion to drive our artificial pancreas program has truly earned him the moniker 'Father of the Artificial Pancreas.' And his steadfast commitment to realize promising beta cell encapsulation therapy has brought this therapy closer to reality. JDRF is a stronger, more efficient and more focused organization than it was four years ago. We are deeply grateful for the outstanding contributions he has made that have brought us closer than ever to creating a world without T1D."
"It is an honor to assume the role as JDRF's President and CEO," said Rapp. "JDRF is a unique organization with a powerful mission. I look forward to building on the strong foundation Jeffrey Brewer has created. I am excited to lead our incredibly talented team as we work together to deliver life-changing treatments, and eventually a cure, to those living with T1D today, on our way to preventing the disease for generations to come. In the end, I know that we will succeed because the passion, determination, and dedication of our donors and our army of volunteers across the world will accept nothing less."
Rapp has most recently been the Mergers and Acquisitions Lead for Monsanto Company and previously served 10 years as CEO of Divergence, Inc. a start-up biotechnology company. Rapp has been involved with JDRF since his son, Turner, was diagnosed with the disease in 2004. He has served on the JDRF IBOD since 2010. In addition to that role, he has served as Research Chair and as a member of the Research Committee, the Lay Review Committee, the Strategic Alliances Committee, the Development Committee, and the Advocacy Committee. His wife, Emily, recently completed a term as Board President for the Greater Missouri/Southern Illinois Chapter of JDRF.
"We are excited to have a volunteer such as Derek, who has the business acumen and management experience to lead our organization, as well as a track record of passionate and effective volunteer leadership, assume the helm of JDRF," said Brady. "Derek has been a successful CEO of a biotechnology start-up, and recently served as a senior executive of a complicated, global biotechnology business. He combines a strong understanding of what JDRF needs at this pivotal time with the kind of managerial intellect we believe will ensure a seamless transition."
JDRF President and CEO Jeff Brewer is Being Replaced
Read his Facebook statement
JDRF President and CEO Jeff Brewer announced Sunday night, via his FaceBook page, that the JDRF is going in a "different leadership direction".
Colour me disappointed...
Alcon Licenses Google Lens Technology
Looks like Novartis owned Alcon saw something promising in Google's lens technology.
Looks like Novartis owned Alcon saw something promising in Google's lens technology.
From New York Times: Joe Jimenez, the chief executive of Novartis, acknowledged in an interview that many previous attempts to develop noninvasive glucose tests had failed, noting that the company previously tried — and failed — to develop its own glucose-monitoring contact lenses several years ago.
What makes this case different is the involvement of Google’s engineers, he said. “One of the biggest hurdles was miniaturization, and that’s one of the biggest benefits that Google X brings,” he said. “This is a set of engineers that are really doing incredible things with technology.”
While the glucose-monitoring lens has gotten most of the attention, Mr. Jimenez said he was also encouraged by another lens in development that would work much like autofocus on a camera, by helping the eye focus on near objects, then readjusting when the user looks at something far away. He said that product was not as far along in development, and that both lenses were still early in their development.
Read the entire article here
Sudden Needle Anxiety
Please, don't turn to me when my daughter looks scared of a needle and say, "Huh, I would think that because of all of the times she gets stuck, this wouldn't be a big deal"
"What is that"?
Those words surprised the hell out of me when Arden spoke them almost one year after we switched from injections to an insulin pump. I'd personally stuck Arden with tens of thousands of needles in those first two years and I would have bet my life that, even though we hadn't used one in almost a year, she wouldn't have forgotten what a syringe looked like or what it was for.
Arden was diagnosed with type I diabetes at the age of two in the summer of 2006 and we switched to insulin pumping in February of 2009; for a solid year after the switch we never needed an injection.
Since that day, I'd call Arden's relationship with needles one of tolerance. That is, she doesn't like them, she doesn't hate them. We inject insulin sporadically, she gets an annual blood draw at the Endo and once in a great while... she needs dental work. Never a problem. Arden chats through blood draws, winces a bit in the dentist chair and aside from wanting to pick the injection site, doesn't much mind a periodic insulin injection.
Until recently.
A few months ago Arden had two teeth removed in preparation for braces and the procedure required her to get an injection in her pallet. The procedure went smoothly and without incident. Last month her dentist discovered a surface cavity on one of her molars (I blame overnight juice drinking), the cavity was so small that the dentist scheduled a thirty minute appointment and told us that we would't need all of the time.
I cruised into the dentist office without a care in the world, like I said, this sort of thing is never a problem but Arden did not want to get out of my car. Actually, I'm understating this - she was refusing to get out of the car, she held the door in a death grip and began to tell me how she has been dreading this visit all week. I could see that she was not joking, this visit had been weighing heavily on her mind. We talked our way through the fear (I thought) and went inside.
I never could have guessed what would happen next.
When she sat in the chair she was nervous but seemed resolved to go through with it. The doc (Great guy) prepped her mouth without issue but when he picked up the needle... Arden brought her legs to her chest wrapped her arms tight around them and refused to allow him near her mouth. She protested, argued and even screamed at the poor man. Everyone's best efforts couldn't change her mind. We adjourned, rescheduled and tried again two weeks later.
Same result.
After the second attempt, I made an appointment with a dentist who uses laughing gas and that appointment went fine. In the interim however, Arden had her quarterly Endo appointment and it was blood draw time.
Now maybe I'm a simpleton but I never saw a parallel between what happened in the dentist office and a blood draw. Needless to say, I was unprepared when Arden went on the offensive when the nurse at our Endo office brought out the syringe.
I let our dentist take the helm and followed his lead even though my parenting instinct was to be a little more forceful with the situation. I found myself standing in his office thinking, "I know that my father would have held me still and let the dentist work - is that what I should be doing?". The dentist was thoughtful, kind and cerebral. Arden was resolute. I was not sure how to handle this new situation.
When Arden protested similarly in our Endo office I immediately thought, "I have to nip this in the bud... my diabetic daughter can't spend her life making threatening gestures when nurses approach her with needles". I initially stood back to see how the nurse wanted to handle the situation, she wasn't taking any shit and honestly I thought, "Thank you". I'm all for kids having a say and I don't want to scar her but this was nuts and needed to be stopped before Arden felt like this was her new normal. The nurse made it clear that she was taking blood today, I backed her play and a few minutes later it was finished... I found myself wondering if that was the move we should have employed at the dentist. As it turns out, when Arden was faced with the reality of having a second nurse hold her still, she liked that idea even less than getting a needle. She choose between the evils and held still for her blood draw. It was uneventful just as they have always been and when it was over, Arden saw that she was overreacting. I am very happy that the nurse pushed her to comply and that I was clear-minded enough this time to follow my gut.
I'm sharing this story today for two reasons. First, I want you to know this may happen and that we handled it, but that it took a little bit of 1976 parenting to get us there. Second, I really wanted to say this next bit in context.
Please, don't turn to me when my daughter looks scared of a needle and say, "Huh, I would think that because of all of the times she gets stuck, this wouldn't be a big deal" and really don't say, "I thought she'd be tougher since she deals with diabetes every day".
Needles suck, they hurt and they are scary even if you get stuck with them a lot. If you're looking for a comparison how about if I punch you in the face ten times a day for, lets say ten years, and then see if you don't still flinch on the first day of year eleven... when I draw my fist back.
People who deal with extra life challenges deserve support, not overly critical analysis. You're good people and I can see that you mean well, but for the love God think before you speak - please.