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They have a golf night. Gosh. They have a dance program for local kids. Go check them out at touchedbytype1.org and see what they're up to. That make sense?
Yep. Yep.
Okay. I'm just gonna say testing. Can you do it too?
Testing.
Awesome. Evan, we're ready. You introduce yourself. I'll ask a question before you know it will be done.
Meet Evan — 13, and he loves math 2:44
Okay. My name is Evan, and I am 13 years old. And I've had diabetes for six years.
Six years. You were diagnosed when you were seven?
Yeah. Mhmm.
Do you see how Six. Quickly Six?
Yeah.
Wow. At the end of year, you're you're sixth year, though. Right?
Yeah.
Yeah. Math. You know what I mean, Evan?
Yeah. Yeah.
You like the math or not really?
Yeah.
Do you?
I love math. Yeah.
What are your favorite things to do at school besides math?
I like recess and getting to go home.
Don't love school, Evan? Is that what you're telling me?
Yeah.
Yeah. But you're good at math? Yeah. Math's a good thing to be good at. That's awesome.
Well, let's talk a little bit about you having diabetes. Do you actually remember anything about being diagnosed? Yeah. Tell me about it. Okay?
Diagnosed at six, during COVID 3:42
So I was diagnosed, like, when COVID was kind of getting started, I guess. So the only person who could come to the hospital with me was my mom because only one person could come.
Yeah.
And I didn't really understand it that much. And I remember the scariest thing for me was I thought I was never gonna be able to eat food again. So I guess
That's interesting. Do you remember why you felt that way?
Not really. I just I think I wasn't allowed to eat, like, a bunch of sugar that day, but, like, I thought that meant I could never eat again.
Yeah. So Well, you were That was You were six. Right?
Yep.
Were you in first grade? Yeah. I was an idiot when I was in first grade. I can't imagine. Like, you were in the hospital by yourself as a first grader.
Yeah.
Wow. How long were you there?
I was just there for one day because I don't think you were allowed to stay overnight.
COVID stopped it from being you weren't allowed to be sick anymore during COVID. You had to leave.
Yeah.
Yeah. Were you very sick, or did you No.
No? I wasn't that sick because I I wasn't that high because I caught it pretty early. So I don't I wasn't in DKA or anything. But
Did you catch it or did your parents?
It was my mom.
What did she notice?
I'm not really sure. I think she just noticed that I was going to the bathroom a lot in the middle of the night and that I was, like, kinda really skinny, and I was, like, always really hungry.
Yeah. Good mom. What did she do you have, like, other people in your family who have type one? How would she know what all that meant?
I don't have anyone in my family that has type one. I don't really know. Some of our neighbors and some of her friends have type one. So
Oh, she might have known. Or Google maybe. You know? Yeah. Do you guys even Google anymore?
You guys just using ChatGPT? What are you doing?
Google.
Google. Did they let you use AI in school yet? No. No? When do they let you start doing that?
That's gonna be crazy. Yeah. Okay. So your mom takes you to the hospital. There's all the confusion around COVID.
Nobody's allowed to come in. They they take you from your mom at the at the ER?
No. No? We, like, went in together. And then it was just, a really, really small room with a really small bed, and we were there for probably a few hours. I don't quite remember how long, but we weren't there for that long.
Then they booted you out? Yeah. Okay. Okay. And then you were there overnight by yourself, then they your parents came back and got you?
I didn't stay overnight.
Not even. Oh, oh, wow. Just one day and out. Okay.
Yeah.
Okay. Okay. Did you did you leave with, like, stuff, or did you have to go to a doctor if they're like, did they give you insulin and supplies, or what they do?
I'm pretty sure the only thing they gave us was, like, one insulin pen and, like, a few needle tips and then just kicked us out and told us
Good luck.
We would figure it out.
You'll be fine, probably. Goodbye. Yeah. My gosh.
And then that night, my first meal because they told me I could eat whatever I want except for soda, which I don't normally drink anyway. Mhmm. The so what I had for dinner that night was oatmeal, pizza, and ice cream. Because they told me I could eat anything I want.
You were and you were really hungry?
Yeah.
Plus just getting over the fear that you were never gonna eat again. You probably picked your favorite stuff.
Yeah.
Well, since since then, I fig I guess you figured it out a little bit better than that?
Homeschool, co-op, and back to school 7:40
Yeah.
Yeah. What's it like going back to school with diabetes? That because you were if this happened at the beginning of COVID, then I mean, it might have been a year before you went to school. Right?
Yeah. So after I was diagnosed, I was I mean, it was COVID, so everyone had to do, like, online school, like, homeschooling.
Mhmm.
But I didn't do that for that long because before that, I went to a homeschool co op. So it was like, you homeschooled part of the time and you went to, like, school a few days a week.
Okay.
So then I kinda just dropped out from, like, school, I guess, and just started homeschooling, like, with my mom and my sister. So I did that for about two years. And then I the first school I went to after that, it was a Montessori school, and it was okay. With diabetes. The school wasn't that great, but it was okay with, like, handling diabetes and stuff.
Everybody, I think, understood it pretty good.
Okay. Would do you have a feeling as a kid that you're on your own when you're at school, or do you have a feeling that somebody's taking care of this and you're a passenger? Or do you know what I'm asking you?
Yeah. So I take care of myself, like, like, completely now. Mhmm. Because I don't really like other people doing anything, but I know that I always have that option. So, like, I feel pretty good at school because I know that I can always have someone to get help if I need it, but then I can also kinda just, like, live my life.
What do you, dislike about other people helping you?
I'm not sure. I just don't really like talking that much, so I don't really wanna explain to them, like, what's going on
Yeah.
And what they need to do because I already know everything that I need to do because I've been doing it for so long.
You're not looking to explain it to a bunch of people over and over again?
Yeah.
You don't like talking very much, but you're on a podcast?
Yeah.
How'd that happen?
I don't know.
Was this your idea or did your mom force you into this?
It was I guess it was kind of all of our ideas because I listened to another podcast, I guess. And I thought it would be cool if I was on here. Nope. I mean, no one is gonna really ever talk to me About diabetes. Gonna listen.
Yeah. So people oh, I see. So do you not have a lot of people to talk about your diabetes with in your life?
No. I do. I just don't I'm kinda shy. So
You're shy. Okay. Yeah. But this doesn't bother you? You're okay with this?
Yeah.
Okay. Why do you think that is? Because we can't see each other or because why why do you think
it be.
Yeah. I don't know. No. It's interesting. Well, I'm glad you're here.
I appreciate it.
Yeah. Thanks for having me.
Oh, you're very kind. No. No. It's, it's my pleasure. Let's, try to get your perspective here.
Okay? So you've lived half your life without diabetes and half your life with it pretty much. Yeah. Would you call it part of the background now, or is it something you're thinking about all the time? Do you find yourself upset that you have type one?
Half a life with type 1 11:15
Do you not mind? What's your whole mindset around it?
I mean, I don't love having diabetes, but it's I've definitely gotten better at controlling it and kinda just, like, dealing with it. Mhmm. But, I mean, it's always gonna be hard, it's still hard because I'm always having to learn, like, what my body's doing and how to take care of myself. But it's definitely a lot easier now that I can meet other kids through doing, like, some breakthrough t one d stuff. And I can talk to people about, like, how they deal with their diabetes and just getting to, like, have friends that are, like, kinda know what I have to go through.
Can I
ask you a question?
Yeah.
I just did something recently, and I have to be honest with you. I'm not sure how it's gonna go. So I took I mean, you don't listen to the this podcast. Right? Your parents do.
I listen a little bit, but my parents listen
Yeah.
More than me.
When you when you were listening, is it about kinda more, like, management stuff, like, talking about how to manage diabetes, or you listen to conversations with people?
I think it was, like, a conversation.
Okay. So I have these episodes I imagine your parents have listened to that kind of, you know, talk about how to take care of your diabetes and how people do it. And I recently turned them into a collection of songs, but for really little kids, like like, not your age. Right? Like, three, four, five, six years old in there.
And they're very, like, just kinda sing along either about it a a minute or two long each, and they just talk about diabetes, kind of trying to be from the perspective of a little kid, try to give them a little bit of background. But I also created a few that are for, like like, between ages. So, you know, right where you're sitting. Right? You're kind of at the end of between.
Right? You're, you know, a teenager now, but, like, nine, 10, 11, 12 in there. Do you think you would but when I did it, I thought, I don't know if kids this age would do this or not. Does that sound like something that would be interesting to you?
If I sing?
No. No. No. If you listen to a song that kinda is a short song about diabetes, it helps you a little bit. Is that a thing you would try, or does that sound silly to you?
I'll listen to it. I don't wanna sing now.
No. You don't have to sing, man. I'm not saying that. I'm not I'm not even saying listen to it now. But what I'm although, I guess you could.
But when when we're all done, I'm gonna give you a link. And would you go check them out and then send me an email later and tell me what you thought?
Yeah. I'll do that.
Thank you. I appreciate that. Okay. Alright. We'll we'll we'll get past that part now.
So you come home. You're learning about your diabetes. You're gonna be pretty young, so I'm not gonna ask you a bunch of questions about it back then. I'd I'd like to talk to you more about how it feels right now for you in present day. So do you have a feeling like your family and your extended family are able to help you with your diabetes if you can't help yourself?
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Yeah. I feel like my grandparents know, I think, quite a bit, but the rest of my family doesn't live too close to us. So we don't really see them that much, but I feel like the people who I see the most, like, know how to help me.
How does that feel to know that people invested time into learning how to help you?
It's pretty nice because, I mean, it definitely took a few days because once I got home and kinda got more used to it, my parents went over to my grandparents' house and tried to teach them, like, how to give me a shot or how to help me find the carbs and food or something like that.
Mhmm. So Pretty nice.
Don't understand it as good as, like, me and my parents and my sister, but they still understand it and they'll, like, do their best to help me.
That's lovely. How old is your sister?
My sister is 15.
She's a little older than
you. Yeah.
Celiac came first 17:34
Do either of you have other autoimmune issues? Does somebody have, like, celiac or hypothyroidism? Anybody in the family with that?
Yeah. My mom has thyroid disease, and me and my sister have celiac disease.
Oh, you got the celiac. Oh. Yeah. How's that going?
It's okay. I've had celiac for before diabetes, so I'm more used to that.
Oh, that was your OG problem?
Yeah.
Yeah. Yeah. And how about your sister? She had it a long time as well?
Yeah.
Okay. What do you guys do? Like, how would you I guess you've had it forever. You don't even I was gonna ask you how your life is different, but you probably don't know. Is it is it Yeah.
What do you guys do you is anything in the house gluten, or does everybody stay is everybody non gluten in the house, or how do you manage it?
Yeah. Our whole house, like, doesn't have gluten. I mean, sometimes we'll have, like, a bag of hotdog buns for a cookout or something, but that's, like, the only thing.
Yeah. What would happen to you if you had one of those hotdog buns?
I guess I just get, like, sick. I mean, I wouldn't, like, get that sick, but I just wanna feel good for a while.
So sick like your stomach hurts or stick like, can we talk like men for a second, Evan? Like, are you gonna be in the bathroom, like, pooping a bunch or, like, if yeah. Yeah. Not, like, not fun pooping. Not that there's fun in men.
It's gonna be like, oh my god. What's happening? Like, that kind of thing.
Yeah.
I got you. When you say so when you say sick, you mean you're gonna get the shits. Is that about what you're saying, Evan?
Yeah.
Okay. We'll bleep that part out so your parents don't hear it. How long does that last for?
I'm I'm not quite sure because I'd like
Hasn't happened in a long time?
Eat gluten. But Yeah. I think the last time I got sick was I got a I asked for a milkshake at, I think, Sonic, and they gave me a malt. It's, like, only gluten
Yeah.
And, like, milk. So I was like, this doesn't taste like a milkshake. And then my mom, she tried a sip of it, and she was like, oh, that's a malt. So we went home, and I was didn't feel too good for a while.
You know what you should've done? You should've stayed at Sonic and used their bathroom. That would've taught them. You know what I mean?
Mhmm. Yeah.
Yeah. Well, I'm sorry. That sucks that you have to do that, but it doesn't seem like it bothers you, though. Like, having to eat gluten free. Does it it's not a big deal for you?
Not not really because I mean, gluten free food, we found a lot of good gluten free food. So I guess, really, my main problem is just not being able to eat that many carbs, but celiac doesn't bother me that much.
Omnipod 5, Dexcom, and a bad G7 batch 20:30
Interesting. Do you wear a pump right now? Yep. Which one do you have?
Right now, I have the Omnipod five.
Are you using the new 100 target?
I'm not sure.
Tell your mom when you're done. They just lowered the target down to 100 if she wants to change. She can, I think, do the update and do it?
Yeah. I think we did that. I'm just not positive.
I understand. You're not the you're not the IT consultant in the house. Is that what you're saying?
Yeah. Yeah.
Yeah. What is that? Were you wearing a Dexcom? Is that a g seven, g six, g seven fifteen days?
The g six right now.
Oh, not much longer.
Yeah. I don't like the g seven, really.
Why? It's smaller.
Yeah. When I tried it, I don't know if it was, like, a bad batch or something, but it did not work. It was, like so I was, like, 50, and it said it I was, like or I was, like, three fifty or something, and it said I was, like, 50.
Well, I hope you find a way to make it work for you. Are you do you stay very hydrated? Like, are you drinking water during the day?
Yeah.
Yeah? Where'd you put where'd you put the g seven when you put them on?
I think on my arm. I'm not sure, though.
How long ago did you try it?
A few years ago. Maybe, like, two or one.
Well I'm not sure. I will tell you my daughter uses it. It's never an issue for her. It doesn't mean it's not an issue for other people, but I would say give it another try. I mean, you're gonna have to.
So give it another try and and, you know, I I man, I don't know. But to tell you, I wouldn't be scared. I would I would just get in there and give it a shot. I bet you it's gonna be okay.
Yeah.
Yeah. They have fifteen days now. Lasts for fifteen days.
Yeah. That's a good thing because the g six only lasts ten, I think. But a lot of the times, it doesn't even last that long.
Yeah. How long does it usually last for you?
Maybe about, like, seven days.
And then what happens? It starts getting wacky?
Yeah. It just, like, starts, like, missing a bunch of readings, and so I'm, like, fiftieth and, like, two fiftieth and, like, a 100.
Mhmm. You know, I was just talking to a a research scientist who makes the the Dexcoms, and, it's super interesting. Like, that little so you know when you inject your sensor, like, a little wire goes under your skin. Right?
Yeah.
Yeah. And it's got some listen. The technical parts of it, don't know. But it's got this coating on it, and the coating helps it to measure the glucose that's in your interstitial fluid, which just means kind of like the liquid running, like, in your in your body. It's not actually believe it or not, it's not actually measuring your blood.
Yeah.
And then I guess your body sees the wire as a, like, a foreign invader and starts to send, like, white blood cells to it to attack it. And sometimes then those the coating on the wire that helps with the measurement breaks down faster, and so some people are able to wear it longer or shorter depending on how that process goes.
Oh, that's cool.
Ain't that cool? Yeah. I thought so too. I I actually wanna have him on to, like, really, like, explain the whole thing. And I did send an email, and I am waiting back, and I'm trying to be patient because I think it would be a really interesting conversation for people to hear.
Yeah. Because they because otherwise, it just feels like, oh, the thing doesn't work the way it's supposed to. Right?
Yeah.
Yeah. Do you mind putting on the devices? Do you mind, CGMs, pumps, like, the insertion process, or is it not a big deal to you?
I don't mind doing the CGMs as much, the pumps. I mean, they're not bad. I just don't really like doing them because three days goes by really fast.
Yeah. Feels like you're always doing it.
Yeah.
What are you on Omnipod, you say?
Yeah. Yeah.
I know Arden was hanging out with her friends last night. She's older than you. Like, she's, like, gonna be 22 in a month. Wow. That's crazy.
And and she's like, hey. My pod just expired. Like, it was done. It she, you know, wrote it out to the very bitter end, the eighty hours. Do you take it out the eighty hours as much as you can?
Or do you take it off the first time it tells you?
We take it off, I think, I guess, the eighty hours.
Yeah. Whatever. All the way. Right? Till it, like, shuts off?
And, she goes she's just like, can you bring me a pod, please? Like, you could just see like, she was like, I don't really feel like doing this. And, so I filled one and brought it to her. I didn't put it on or anything. I just, you know, handed it to her because it's kind of a bummer.
Right? You're doing something, then all of a sudden, it has to stop. You gotta do this other thing.
Friends who have his back 25:16
Yeah.
Yeah. Do your friends, well, first of all, Evan, only get ahead of myself. Do you have friends?
Yeah.
Alright. Cool. How do your you seem like a nice kid. I would imagine you have friends. How do your friends talk to you about your diabetes?
Is it a thing that you've helped them to understand, or have they figured out on their own, or do you keep it very private?
A lot of my friends, I guess, know people or have heard of diabetes before. So a lot of my friends, like, know a little bit before they meet me. And then they know, like, that you have low blood sugar and high blood sugar and that you'd, like, need to eat sugar sometimes. But, I mean, they're not, like, professional doctors, but they all understand it pretty good. And a lot of my friends have helped me.
Like, if I'm not really close to anything, like, they'll help me get back and, like, make sure I have everything that I need.
That's really nice. I know a couple of doctors that aren't professional doctors. What do think
of that?
How's your doctor? Any good?
Yeah.
You like him or her?
Yeah. She actually just, I guess, not retired, but she moved away from the hospital. But I haven't met my new doctor yet. So
Oh, well, that's something. I my daughter just lost her doctor too. It sucks, honestly. Well, I'm sure the next one will be good. And if they're not, you can go look for another one.
You know?
Yeah.
What do you what do you count on your doctor for? Because you've had diabetes for a while now. Like, you know what you're doing. Even with the celiac, know what you're doing. So what does the doctor help you with when you see them?
I mean, I feel like not
Evan, you can say it. Go ahead, buddy.
I don't feel like they do that much, like like, when I actually see them. I guess the really, the only thing they do, I guess, is, like, give me the actual devices, like the CGMs and the pumps and stuff.
Prescriptions. You don't even see prescriptions anymore. That's all digital. Right?
Yeah. Yeah. I don't feel like I need to, like, get advice from them, really.
Mhmm.
But I guess I just need to go see them so they can make sure I'm alive and they're not just prescribing stuff to a corpse.
Evan, that is the most honest that's that is the most honest reaction to that question I've ever gotten in my life. That's awesome, man. You're fantastic. Thank you. You're like, they just touch me.
They go, yeah. Yeah. He's alive. He can have more insulin. I would have oh my god.
Just made my day. I would imagine that endocrinology for people with type one diabetes will will maybe move almost completely online at some point. Like, maybe you'll see your doctor once a year, but that you're gonna check-in through, like, Zoom calls and things like that, and they're look at you and go, hey. You look like you're looking forward still. How's everything?
Go get your blood work done. I'll check the blood work online. Like, you know, the whole reason you'd go to the doctor is because you have a problem they haven't seen before, and, you know, and then they need to take your blood sometimes then test it. But now there's now there's, you know, phlebotomists or, you know, blood testing locations near your house. You don't need to go to the doctor for that.
It's not like you're being diagnosed with something new. They already know you have type one diabetes. They don't really need to lay their hands on you again, not not very frequently. Maybe, you know, once in a while, check your extremities and stuff like that. But even that, I mean, I gotta be honest.
My kids had diabetes for a really long time. Evan, like, you were six. My daughter was two. Just told you she's on yeah. Yeah.
I just told you she's almost 22. She said it for twenty years. And, like, you know, they, like, they touch your feet and, you know, and do you get that once in a while? They're like, hey. You feel that okay?
I can. And they're or, like, run a leg of thing up your foot to see if you move, like, that kinda I mean, you know what I mean?
Yeah.
Yeah. Yeah. You hear me. Right? It's all bullshit.
Right? Say it. Go ahead, Evan.
I'm good.
I like you. You're very good, kid. You're also, like your parents are nice people. Yeah. Yeah.
You feel that about them? Like, you feel that they're kinda kind, nice people?
Yeah.
What would you tell if you had to explain them to somebody else, how would you get that across to a stranger?
I mean, I feel like my parents are really nice. I mean, they don't let me just do, like, absolutely anything I want, but they let me do, like, anything that I I want to do that's, like, reasonable. They help me with a lot of things. They make sure I get everything that I need. They help me with my diabetes.
They
If you need if you need help with your type lot. If if you need help with your type one overnight, is it always one of them, or do they share that responsibility?
They share the responsibility, I guess, because I do not really wake up.
Do you think about that ever about when you get older? Like, what am I gonna do when I have to wake up?
Yeah. I mean, I don't know why I don't wake up because normally, for, like, any other slight noise, I, like, shoot up. But for the, like, alarms and stuff, I just sleep, like, right through it.
So if a squirrel runs across the roof, you think someone's breaking in the house. But if you hear beep beep beep beep, you don't move. Yeah. Well, they would tell you that you've built up something called alarm fatigue. Like, your your body is your body is accustomed to hearing it so much so that it kinda tunes it out.
Yeah. I guess so. Yeah. You can try changing your alarms to different sounds. That might help you.
Alright.
Yeah. Do you have a SugarPixel? No. Customtype1.com/juicebox. I make a couple bucks if you buy one, Evan.
And it's this it's this very cool little device that goes to the side of your bed that you could, like, you can see your blood sugar, like, without having to open up your phone. It also has alarms. It also has a thing called a bed shaker. I know I sound like I'm doing a sales pitch here, but I just got to see the new bed shaker in action, like, up close. And it it's like a little puck or a disc that you put under your mattress.
And when your blood sugar hits it, you know, you decide by at what number, but that thing vibrates. And I'll tell you what, if that doesn't wake you up, I'd I'd be surprised. So
Yeah. That's I've I've I've heard of the SugarPixel, but I have not heard of that.
Yeah. It's pretty cool. I actually Yeah. Yeah. I I have and the new one has, like, little characters on it and everything.
You might be getting a too old for that. Now you can shut that part off and just use pictures and stuff like that. But if you want the characters, pick the, the pirate because I am technically the pirate. I just wanna say that. And, anyway, everyone should check that out.
SugarPixel, college, and making money 32:23
Mine, please use my link. Sorry, Evan. You don't know the hell of having to make money. It's not fun. Are you looking forward to going to college and learning something and going out on your own, or how are you feeling about all that?
I I feel like I don't need to go to college to make money, but
How are you gonna make the money? Plan. Heaven, how are gonna knock how are you gonna bring home the bags? What's going on? What do you got a plan?
I don't know. I guess so.
You guess so? Did your mom go to college?
Yeah. My parents have gone to college. I just don't like school, so I don't wanna do more school.
Yeah. Can I tell you a secret, Evan?
Yeah.
Not many people like school. Yeah. They also don't like taking out the trash, but then there's the trash out at the corner. You know what I mean? Somebody does it.
Yeah. Yeah. You'll you might feel different as you. But even if you don't, that's not for us now. Have you thought about what happens when you get older and you move out and around your diabetes, or is that not a thing you've considered yet?
I mean, a little bit, but not that much.
Not that much yet. Yeah. You're too young for all that. I wouldn't worry about it. Seriously.
Yeah. Do you do for, what they call fun? You got pets, activities you do, anything at all?
I do a lot of biking and, like, engine stuff. I don't know. I I like outdoors.
You like the outdoors? What kind of biking? Like, off like, do you, like, get on the street and ride for distance, or you get on, like, something like a BMX bike and ride in the dirt?
I have a BMX bike, a mountain bike, and, like, a minibike. It's, like, a small, like, motorcycle thing.
Oh, is it electric or gas?
It's gas.
Nice. Your parents let you have that?
Somehow.
Do have to talk him into it?
Yeah.
Your dad ride a motorcycle when he was younger? No. No? You just did that like not my dad. Is that what you just did?
Yeah. I heard shade. You know what shade is, right, at 13?
Yeah.
Yeah. Heard a little shade for your dad there on that one. You're like, nah. He's not cool like that. Is that what I got?
Yeah. And I heard a lot in that yeah. Didn't I?
Yeah. Mhmm.
Well, that's good. You you see you like being outdoors? Do you go out with your friends? You look kinda more alone when you're outside? How do you manage your diabetes when you're running around and doing all that?
I guess I go and do stuff with my friends a lot. And then they I've known the like, my friends that I spend the most time with, I've known them for, like, a pretty long time. Like, so they know like, they they can, like, call my parents if they need to bring me something. Mhmm. Or, like, they always make sure I have, like, glucose tabs or something before we go out.
So I can I feel, like, good going out with them and doing stuff?
You're comfortable around them. If you if you had a problem, you think they'd have your back?
Yeah.
Have you had a problem? Have you ever gotten so low that you can't help yourself?
I think one time at my old school, I was really low and I was, like, not thinking too straight. And there weren't teachers, like, really close. It was, like, the end of the day, and we had, like, recess at the end of the day. Mhmm. So my one of my best friends, he ran and got, like, a teacher, and then they came and helped me.
But I feel like my friend did, like, most of the things that I needed to happen. Like, the teachers didn't do
That's awesome.
As much as he did.
Yeah. Was that recently or a while ago?
It was a while ago. It was maybe three years ago. I'm not quite sure.
How often do you get, like, not low where you can't help yourself, but low? Like, is in a week, you, like, having to run for a juice box with any frequency or no?
I mean, not that much, but I guess most of the time when I go low is in the middle of the night, like, I have to drink juice or something.
Yeah.
It's most of the time in, like, the middle of the night.
Gotcha. What's your do you know your a one c?
I think it was 6.6
That's awesome.
Or something like that.
Good for you. Especially gluten free. Some of the gluten free options are more carb heavy, so it's a little little Yeah. You know, little more insulin and and maybe knowledge about how to cover that stuff. Good for you, man.
That's really awesome. You said you're taking care of it yourself mostly?
Yeah.
That's cool. Where'd your did your parents taught you, though?
Yeah. I've we all, like, kinda figured out together. So I was once I once we all kinda, like, figured out how to manage it better, I just thought it would be easier if I could learn how to do it because then I wouldn't be, like, really helpful just when I got older.
Mhmm. It's smart. It's good for you. Are you like that with other stuff? Like, you like to be in charge of what you do and know what's going on?
Yeah.
You do? That's your personality then. It's not just about diabetes.
Yeah.
Gotcha. Hey. Do you have any pets?
I have a guinea pig.
Really?
Yeah.
Does it got a name?
Yeah. Coco.
Coco. How long have you had him? Hammer hard, do you know?
It's a hurt.
Her? How long have you had her?
Three and a half years.
How are they as pets? Are they fun?
Yeah.
Do they good. Tell me.
I've taught her, like, some tricks and stuff. She's like a lot of guinea pigs aren't, like, very smart, but she is really smart, and she has, like, a really big personality, I guess.
That's nice. You know, if you ask people about their kids, they're like, oh, my kid's so smart. Everybody thinks their kid's so smart. Yeah. Have you ever met a kid that's not smart?
Yeah.
And his mom thinks he's smart too. What do you think of that?
Yeah.
Yeah. You'll never know if that guinea pig's smart or if you just love it. You know what I mean?
Yeah.
Can I ask you a couple because you said you like to go outside, and I just read through your notes for the first time? I'm I'm a well prepared podcaster. I just looked at the notes that your mom sent. But you live somewhere where I I think about moving to.
Oh, really?
Yeah. How do you like it there?
I think it's pretty nice. I mean, I don't I guess, I spend most of my time, like, not out in the city and stuff, but I just like like the neighborhoods and stuff around here, like the outdoor stuff that they have here.
I was looking at a slightly more rural location, not quite where you are, but pretty close to where you are. And I only know that because your mom, for some reason, like, typed in the town you live in, which we're not gonna tell people we're not gonna tell people where you live. But I I wanted something, like, a little more rural, like, maybe a, like, a little more space between me and the next person.
Yeah.
Yeah. You like that about the area?
Yeah.
How's the weather? Don't lie to me. In the summer, too humid or is it okay?
It's really humid.
Don't say that in front of my wife. I'm never gonna get the mood if you say that. Okay? It's either,
like, really humid or, like, really rainy.
You get a pool?
Yeah.
Alright. Because the pool hard to come by there. Right? Because the ground's rocky. A lot of people don't like, there's no basement in your house.
Right? No. Yeah. You know why that is?
Because our house didn't come with a basement.
You would think so. But what I've learned from looking into it, Evan, is that the ground is so rocky that it's too expensive to dig the basement. Oh. Interesting. So Yeah.
Your friends don't have basements either. Right? No. Do you have any friends with basements?
Yeah.
Is that friend richer than everybody else?
Yes.
Ah. See how we just figured out how the world works by the holes under your house? Amazing. Isn't it, Evan? Yeah.
Yeah. Look at how I am. I'm like a a detective. You know what I mean? Yeah.
Except about stupid stuff. Right? Because that's the dumbest thing ever. But we did figure out that your richer friend has a basement. Yeah.
Did they treat you differently because they're rich?
Not really.
I mean Not really?
They just have more expensive stuff, I guess.
Shyness, anxiety, and getting help 41:18
Yeah. Evan, I like your age because you're right at the part where you almost understand my psych sarcasm, but not all of it. So you're not a 100% sure all the time. It's it's kinda delightful. Are you having a good time so far?
Yeah. Are you nervous?
Little bit.
You're still nervous? It's been a half an hour. What's it like being shy? Like, how would you do how would you describe it to somebody else?
I don't know. I guess just not really wanting to talk to a lot of people.
Are you anxious at all? Do you know that word? Yeah. How you are anxious?
Yeah.
How does that come across in your life?
I mean, it's not, like, the most fun thing ever, but it's not, like it doesn't, like, ruin my life.
Yeah. It it's it's manageable for you.
Yeah.
Do you think that the shyness and the anxiety have something to do with each other?
Maybe. Yeah.
We might figure some stuff out while we're talking, Evan. Like, the thing with the basement, which I dissected in two seconds. I I know you were impressed by. It's okay to say. Yeah.
It's okay to say if you were impressed. Well, how about your anybody else in your family anxious? Like, where'd you hear that word from? Did somebody tell you you were anxious, or do you just feel that way?
I just felt that way, I guess.
Have you ever told your parents? Yeah. What'd they say?
They, like, help me with anxiety and stuff.
How do you how do you help with that? How does a person help somebody with that?
They help me, like, talk to a doctor about I don't know what kind of doctor, but someone and then they gave me, like, anxiety and depression, like, medicine.
Okay. Like boy. If I guess the medicine, do I win something? Is it Sure. Is it Cymbalta?
I don't think so. No.
You don't know what it's called, though? No. Okay. Does it help? Yeah.
Awesome. Like, it help do you think it helps a lot? Like, is it a noticeable change for you?
Yeah.
That's awesome. And how long have you been doing that?
Probably about a year.
Okay. How about your sister? Does she do the same or no?
Yeah.
How about your parents?
Yeah.
You guys just have, like, a whole, like, you have, like, one big bowl of pills in the middle of the counter? Yeah. You just pick out of them like a candy dish?
Yeah.
Yeah. It's it's nice to get help with stuff like that. It really is. Trust me. The unchecked anxiety your whole life is not would not have been fun.
It's it's Yeah. Kinda cool that your parents are helping you with it. Do you talk to a therapist ever?
Yeah. But I do not like it.
Is it better talking to me or the therapist?
You.
Do you feel better now than you do while you're talking to the therapist?
Yeah.
Why do you think that is?
I don't know.
Because I don't like telling people stuff, really.
But I'm not people?
Yeah.
I'm like a Like Go ahead.
Your computer.
Yeah. I'm just the guy on the other side of the thing.
Yeah.
Yeah. This is nice. Okay. Yeah. Well, I'm not a therapist, so please don't get confused about that.
And I'm not saying I am. But, you know, if people just wanna chat, make pod do you think that's what the podcast is? Maybe people are just using it like free therapy?
Yeah.
Could be. Right? Should I charge them money for like, what do you pay to go to the therapist? You know what I mean?
Too much.
Yeah. I could take some of that cash. Help me move to, our undisclosed location. Yeah. I was just there a few weeks ago.
Oh, really?
Yeah. I I stopped on my I I was really serious about it. I was I was on my way to Atlanta to I gave a diabetes talk in Atlanta. I was terrific, in case you're wondering about it. And and I stopped where you are, about where you are, and I looked at a couple of houses while I was there.
Oh, that's cool.
Yeah. And I'm I am trying to talk my wife into going back, or to going with me next month to look around a little bit. We figured in July, we will have a pretty reasonable a pretty reasonable feeling for what the weather's like in July, right, like, far as the heat goes.
Yeah.
Yeah. So we figured when if we're there in July, we're gonna we're gonna know. And so so, yeah, we're gonna try to, like, go back and check it out together a little bit. Yeah. Tell me one reason why forget the weather.
The airport game 46:10
Is there a reason why I wouldn't wanna live there? What do you hate about the place?
I don't know. I like it, I guess.
Yeah. Nothing nothing that you'd really nothing jumped out. I didn't nothing jumped out at you when I when I said that. Right?
Yeah. Okay. I mean, I guess one of the worst things, I guess, that isn't really that big of a deal
Mhmm.
Is there's not, like, a, like it's not, like, a big city, so you can't, like, travel anywhere from it. It's not, like doesn't have a big airport or anything. So
Is there not the oh, I almost said the word. Isn't there an international airport, like, an hour from you?
No. Really?
Yeah. Where does that airport go to? What? There I mean, there's definitely an airport. Where does it go to?
It's just, like, flights to bigger airports, I guess.
Hold on a second. It says it's international. Where would you like to go? Let's see if we can find a fly I know where you would fly from, so we won't say it out loud. Tell me a place you wanna go, and I'll I'll see what we can find.
Maybe, like, Europe.
Alright. Alright. Hold on a second. Can we go from here? Hold on a second.
I just have to get the the airport code for this one. I got it. Alright. So do I go to Paris? Let's say Paris.
Okay? Alright. Alright. Just gonna use Air France. Wow.
Not cheap, in case you're wondering. No. You can do it. You can leave 9? Yeah.
$900. You wanna go? You got 900? No. How much you got?
I don't know.
I can't like Scott on a job. I don't know. Let's look at one other place. How about London? When do you wanna go?
Let's go next week. We'll leave on the third we'll leave on the thirtieth. We'll come back. We'll just take a short trip. We'll leave on the thirtieth.
We'll come back on the fourth. That way, can get home and see your family. And survey says, oh, the Internet works so much better than I was a kid. You have no idea. Yeah.
We can take off. There's a connecting flight. Hold on a second. To London. But that's not a big deal.
Yeah. Go you gotta go from you to New York, New York to London. Yeah. That's not bad though, right? Not 1,600, my friend.
2,700 on Delta. $2,700? That's premium. Business is 8,000. Economy is a thousand.
Who is paying $8,000 a final plane? I wanna meet you. We should be friends. And I I bet they have a basement is what I'm gonna say. You know I'm saying?
Yeah. Did I almost make you laugh that time, Evan? Yeah. Because I'm trying pretty hard. Anyway, hold on one second.
I'm gonna tell you that because now we're looking at a map. The thing I oh, you are much further east. The so the place that I looked at was more like two hours west of you.
Oh, yeah.
Oh, okay. So you're, like, more like three hours from the airport.
Yeah.
So that is not really very close. And then you would probably fly out of the state on your right hand side, not the state you live in. Is that what I'm getting?
Yeah.
Yeah. Okay. Look at us figuring things out and not you're a pretty smart kid. How you're following along. Like, I'm talking cryptically to you, and you're following me.
Why is that? Why are you so smart?
I don't know.
You are, though. Right? You have good grades even though you don't like school?
Yeah. Mhmm.
What he’s proud of 50:17
Evan, tell me more about you. Seriously, tell me something about you that other people don't know that you think is really interesting about yourself.
I don't I don't know.
You don't know? What are what are you proud of about yourself?
I guess being able to, like, manage all my health things and stuff because, like, a lot of my friends and stuff, like, they know that I have diabetes, but, like, they don't really know that, like, everything that you have to do, like, twenty four seven.
Yeah. And that's a thing that you're proud of?
Yeah.
You should be. And and do you think that other people would find that interesting?
I think they would find it more interesting if they, like, knew what it was like to live like that for, like, your whole life.
So if you met a person who did not know about diabetes and you wanted to impart upon them how proud you are of yourself, but you first had to explain diabetes to them, what would you tell them about it?
That it doesn't sound that complicated, but it's like a full time job.
How so?
Because you never get a day off, and it's just like you always have to be doing something or have to be, like, giving yourself a shot or, like, making sure you can eat what the food that you wanna eat and, like, make sure you have enough insulin and just everything.
And that's important because Pretend I don't know anything about diabetes. What what why do you have to do those things?
So I don't die.
That's a short term problem. Do you have long term concerns?
I don't know.
Your parents talk to you about any of that stuff? No. No? You get to it when you get older. Don't worry.
You got time. I think that's a really good explanation. Yeah. That's a really good explanation. And you're making my point.
You're a bright kid. I like this. I think you're you know what? You wanna hear something really sad, Evan?
Yeah.
This is just sad for you, though. I think you're gonna end up going to college.
Oh, dang it.
Man. I think you're gonna end up going to college. If you did go to college, what would you wanna learn about?
Engineering.
Oh, so if engineering is what pops into your head, but you don't think you're going to college? Yeah. We get to use the AI, start a startup, become the world's first startup trillionaire. Is that your plan?
Yeah.
Yeah. You just wanna make about, what, a couple bill and then you think you'll be okay? Yeah. What would you do if you had to start a company? Right now, I get alright.
Here's the here's the game, Evan. I bring you money right now. I go, Evan, here's a bunch of money. Start a company. What's the company?
I don't know. Maybe, like, drop shipping, and I can become really rich.
Evan, you gotta get off of TikTok. Are you on the TikTok? No. Where where are you getting drop shipping from? Reels?
I don't know.
YouTube? No. Oh, that's it. So wait. Hold on a second.
Do you have TikTok? No. Do you have YouTube?
Yeah.
Yeah. Do you have Instagram? No. No. So you have YouTube.
The YouTube channel 53:57
You use YouTube for what?
I have, like, a YouTube channel.
Do you really?
Yeah.
What's it what do you want people to know about it or
no? Sure.
What's it well, hold on. I'll look into it. You said drop shipping. I almost, like, I almost peed myself. That's the that's the most what are you guys?
Millennials? What are you? Do you know what your thing is? I don't even know how to do you know what what your hold on a second. A 13 year old is I'll find out.
I don't know all about the, like, you know, boomer, millennial. No. You're okay. You're not a millennial. You're a Gen Alpha.
Did you know that? Or or possibly a late Gen z depending on the exact cutoff someone uses. Alright. So not the point. Your answer of drop shipping was the most whatever the hell I've ever heard in my entire life.
That was crazy. Alright. What's your what's your account? I'm gonna look it up.
It's T1DUnderscoreMTBMX.
Oh, the bike angle.
Yeah.
You have 312 subscribers. Dude, your videos have thousands of views.
Yeah.
Your videos I I don't really use YouTube. Like, my podcast goes up there because it just does, but people don't want, you know, people don't wanna listen to audio on YouTube. Generally speaking, there's a few of you out there. God bless you. But, like, I don't do 6,000 views on a thing.
This is awesome, man. Is it just you, like, learning tricks on your bike? Oh, I just saw you jump over a ramp? Another one. Yeah.
Okay. It's not raining there in this video. You made it you made me scared that it's just constantly raining. Alright. So at t one d underscore m t b m x mountain bikes.
Right?
Yeah.
Alright. Everybody go check out Evan on YouTube. That's cool. Oh, look at you. Did you start this yourself, or did you go to your parents and say, I wanna start a YouTube channel?
I mean, I guess I did it myself. I just had to ask them to get YouTube.
Yeah. At your age, do you does YouTube feel like a job to you or just a nice way to reach people?
I don't know. I I mean, it doesn't feel like a job. It just feels like I don't know.
Just a a thing that you have access to?
Yeah.
Yeah. Drop shipping. That's what we're calling this episode. I can't believe you said drop ship. Of all the things I thought you were gonna say, that would not have been on my top 1,000 list.
You guys are so your whole generation is so incredibly connected to the the world. By the way, I don't think drop shipping's real. I think it's a thing like, I think it's a pyramid scheme. Be careful. Okay?
I could be wrong. Maybe I'll get a note from a drop shipper. But you guys are inundated with videos that tell you, like, you know, here's the thing you can do to be wealthy. Right?
Yeah.
They're everywhere. There's two things you can do to be wealthy. You wanna hear what they are? Yeah. Go to school and then put your money away.
Compound interest. Okay?
Okay.
Alright. Save a dollar, make 10. Spend a dollar, lose 11. You understand?
Yeah.
Alright. Save for the future. Unless you get lucky, and then god bless you, and that's so cool. But you can't plan for, like, giant success like that is my point. You you watch mister beast?
No. Have you ever?
No. That's
interesting. He's only 26 and he seems old to you. Because you know what it is. Right? Yeah.
Yeah. But you you're not interested? No. Is there a mister beast for your age group? Is there some, like, YouTuber that you love?
I mean, not really.
I just Okay.
Don't really spend that much time on, like, my phone.
On your phone? You're outside a lot. Yeah. You did say that by the way, I think that's great. But you, you did say you listened to a podcast, though.
Did you is that did you say that?
Yeah. I guess, see you a little bit.
No. I thought you said another one, or am I miss remembering? I'm misremembering. That's fine. I don't wanna pull the curtain back too far, but I've already recorded once today, so I could be confusing two different things.
Sorry about that. What what am I not asking you about that you would want me or someone else to know?
Breakthrough T1D and meeting other kids 58:45
Maybe, like, I do a lot of things for breakthrough t one d.
Do you? Okay.
Yeah.
Like, in person events or walks? What do you do?
I do the, like, the events and, like, the galas and stuff, and I'm a youth ambassador. Okay.
What what do you get out of that? What does that do for you? Like, how does it enrich your life?
I don't know.
Something you want to do? Is this the thing your mom making you do? What's going on?
Yeah. Kind of. But
She'll be thrilled to hear that.
I have met a few kids that are, like, around my age, but they've had diabetes for, like, a year or, like, less than a year.
So it has been nice to meet people?
Yeah. And I think it helps other people too that they know, like, that there's other people out there too that have diabetes.
Yeah. So you do enjoy being that person for someone else?
Yeah.
But just you're shy, so it's not great for you.
Yeah.
Yeah.
I just don't love having to talk to a bunch of random people.
But Yeah. I hear you. But A
lot of the people that I meet are also pretty shy. So
Well, you know, they say a stranger is just a friend you haven't met yet. You buy into that at all? No. No. No?
What else is your mom making you do that you wanna that you don't wanna do?
I don't know.
Not too bad? That's the school? Were you gonna say school? Yeah. What's she making your dad do that he doesn't wanna do?
I don't know.
You don't know? Trust me. My whole life success is because my wife makes me do things I don't wanna do. I'd be making you know what I'd be doing right now? I'd be making a BMX YouTube channel if it wasn't for my wife telling me that we had to take out the trash and paint the room and stuff like that.
You know what I mean? Yeah. It's good sometimes to get a girl to keep you in line. You know? Or else you're just gonna be a boy the whole time, which is nothing wrong with it, but you're not getting anywhere.
Although you might be an engineer.
Yeah.
Okay. Computers, electrical Mechanical. Mechanical. I was getting to it. Mechanical.
You like the way things work?
Yeah.
Yeah. You said something about engines earlier, but you didn't expand on it. Have you ripped apart engines?
Yeah. I like I don't know. I like things that, like, move.
Do you like trying to figure out how they move?
I guess so.
Yeah. What do you what's the last thing you tore apart to see how it worked?
I'm not sure.
Have you done that? Have you ripped things apart to kinda just look inside and see what they do?
Yeah. I guess the last thing was my my mini bikes, like, my little motorcycle thing. I like taking that apart and doing, like, upgrades and stuff to it.
You put it back together?
Yeah.
By yourself?
Yeah.
Yeah. Look at you, man. You must be proud of that.
Yeah.
Yeah. It's okay to be proud of yourself. I'm proud of myself, all I do is make a podcast. You know what I mean? Like, I I I'm not even dirty when it's over.
So Evan, you're a good kid. What do you think the next couple of years are gonna be for you? Are you gonna be 14, 15, 16? What are you looking forward to? What's coming up?
Being able to drive.
Yeah. Driving. It's awesome. You know, there's a state near you. You only have to be 14 to drive, but that's not your state.
Maybe I should move there.
Move there. Would you what would you do? Where would you go if you could drive right now?
I don't know.
See, now you have this driver's license, you're buying insurance, you got a car, there's nowhere to go. Don't be in a hurry to grow up, Evan. How does anybody ever say that to
Yeah.
Yeah. You know why they say that?
Yeah. I don't know.
Because they wish they were younger like you. You're busy wishing you were older like them. They're busy wishing they were younger like you. You know the word fickle?
No.
No? Well, that's what people are. You can look it up later if you want to. Anything we haven't talked about that we should have, Evan? Anything at all that I've missed, forgotten to ask you about, or that you want desperately to tell people about and have not been able to yet?
Three weeks in Spain, on his own 1:03:27
I the like, a few weeks ago, I went to Spain, and I went for three weeks. And I, like, handled all my own diabetes stuff and,
Evan help. You you went for you went overseas without your mom and dad? No. With my With your mom
and dad. Family.
Okay. I was gonna say, like, that's you're you're you're not telling me the whole story if you're international traveling by yourself already. But so you went you and your family went to Spain. And Yeah. Three week trip, you managed it the whole way.
Air planes, hotels, buses, trains, pod changes, the whole thing.
Yeah.
Never once said, hey, mom. I I need a ham with this.
I don't think so.
No. Happy darn, boy. That's awesome, man. Good for you. You must be thrilled that you can do that.
It's okay. You you you let yourself have it, Evan. You know what I mean by that? Yeah. Yeah.
Take the win. You ever heard that one?
Yeah.
Yeah. Take the win, man. That's pretty impressive. I line up a bunch of 13 year olds. I don't know that they could all say that.
Seriously. You know what you need?
What?
I think you need more self confidence.
Oh, yeah. Probably.
Where are we gonna get that from?
I don't know.
Simple stuff, man. You should look around to your life. You're already doing a ton of things to be proud of. Like, take something from that. Like, look at it and go I mean, anything really.
I figured out how to set up a YouTube channel and set up a camera and video it and got thousands of people to look at it. That's an accomplishment. Be be be feel good about that. I can take care of my diabetes in a way that leads me to an what'd you say? An a one c, are Six and a half, do you say?
Yeah.
That's awesome, man. There's adults out there listening right now that are like, this kid is crushing it, and I wish I could do as well as he's doing. So be be confident about that. There's a there's a two things you're great at. It sounds like you're very good at, you know, mechanical engineering for a 13 year old.
Took a part of motor. That's a thing to be proud of. You got a really great family. It's easy to be proud about that. You're a nice person.
I think that's the thing you should be proud of. You know, you do well in school even though you don't want to. It's perseverance. I'd be proud of that. Did you even know there were 10 things that you should be proud of before we started talking?
Not really.
No. Don't forget. Okay? Alright. Do me a favor.
Like, take this level of confidence and this is your new look. This is your new normal. You live up here now. Okay?
Okay.
You see how confident I sound? Yeah. Yeah. Mostly, I'm lying to myself about this, but there are a couple of things I've done that I'm real good at. There's a couple of things I'm really good at.
I'm not good at everything, but I'm proud of myself for those things. And I and my derive my confidence from that. You know what I mean?
Yeah.
And and don't let people tell you that that's boastful. I mean, don't run around yelling to people all the time how good you are at everything. That's just you being a jerk. But, like, you believing it, that's confidence. There's nothing wrong with being confident, especially when you have, like, a lot of great check marks here, things in your life that you you should feel confident and proud about.
Yeah.
Alright. Listen. Uncle Scott has done enough today. You know what I mean? Yeah.
This is all I got in me. Do I was school over? Are you is
this Yeah.
Yeah. Yeah. I was gonna say I didn't get you a day off from school. Did I? That would be awesome.
No.
No? What do we call this episode?
Drop shipping.
Goddamn right. That's a good for you, kid. That's what we're calling it. Drop shipping. That's right.
Alright. You were fantastic, man. I'm gonna stop the recording now and say thank you, but let me talk to your mom again so that, you know, we make sure she's good with everything. Okay? You wanna say goodbye to the people?
Goodbye Awesome. People.
Goodbye, people. Thank you. You're sarcastic. You got a good sense of humor. You should let it out once in a while.
Tell me a joke. You know a joke?
Yeah.
Can can you before you get your mom, tell me the joke.
Okay. Would you rather eat a baby goat or a matter baby?
Would I rather eat a baby goat or a matter baby?
Yeah.
And I'm supposed to say, what's a matter baby?
Yeah.
Yeah. Alright. Okay. It wasn't great. We'll work on that.
Go get your
mom. Okay.
Today's show is sponsored by Tandem Diabetes Care, the Eversense three sixty five, and Touched by Type one, who you can learn more about on Facebook, Instagram, and at touchedbytype1.org. Head now to tandemdiabetes.com/juicebox and check out today's sponsor, Tandem Diabetes Care. I think you're gonna find exactly what you're looking for at that link, including a way to sign up and get started with a Tandem Mobi system. I'd like to thank the Eversense three sixty five for sponsoring this episode of the Juice Box podcast. And remind you, if you want the only sensor that gets inserted once a year and not every fourteen days, you want the Eversense CGM.
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- Diagnosed at six, early in COVID. His mom caught it fast — nighttime bathroom trips, weight loss, constant hunger — so he never hit DKA. One parent allowed in the hospital, a few hours in a small room, sent home with a single insulin pen and a good-luck.
- Celiac was the original diagnosis. Evan and his sister both have celiac; his mom has thyroid disease. The whole house is gluten-free, which he takes in stride — his one gripe is that gluten-free options can run carb-heavy.
- He runs his own management. Omnipod 5 and Dexcom, a 6.6 A1c, and near-total self-care — he prefers it that way, saying he already knows what to do and doesn’t like re-explaining it to everyone.
- A shy kid with a public streak. Evan is open about anxiety and getting help for it, doesn’t love therapy, and is quietly building a mountain-bike YouTube channel with 300+ subscribers and videos in the thousands of views.
- Three weeks in Spain, handled solo. Flights, hotels, pod changes, gluten-free meals abroad — he ran all of it himself. Scott’s closing push: take the win, and let a dozen real accomplishments become actual confidence.
- Breakthrough T1D — The research and advocacy organization (formerly JDRF) where Evan serves as a youth ambassador.
- SugarPixel — The bedside glucose display with alarms and a new under-mattress bed shaker — useful for heavy sleepers with overnight lows.
- Juicebox Podcast survey — A quick way to support the show — take the listener survey.
