#1776 Bear Attack - Part 2
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In part two of this conversation, Domino continues her story of living with Type 3c diabetes after surviving necrotizing pancreatitis.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner (0:0) Welcome back, friends, to another episode of the Juice Box podcast.
Domino (0:14) Hi. (0:14) My name is Domino. (0:16) I'm 50 years old, and I am a type three c diabetic.
Scott Benner (0:23) This is part two of a two part episode. (0:25) Go look at the title. (0:27) If you don't recognize it, you haven't heard part one yet. (0:29) It's probably the episode right before this in your podcast player. (0:34) How would you like to share a type one diabetes getaway like no other?
Scott Benner (0:38) Join me on Juice Cruise twenty twenty six. (0:40) You may be asking, what is Juice Cruise? (0:42) It's a week long cruise designed specifically for people and families living with type one diabetes. (0:47) It's not just a vacation. (0:49) It's a chance to relax, connect, and feel understood in a way that is hard to find elsewhere.
Scott Benner (0:54) We're gonna sail out of Miami, and the cruise includes stops in CocoCay, San Juan, Saint Kitts, Nevis aboard the stunning Celebrity Beyond. (1:04) This ship is chosen for its comfort, accessibility, and exceptional amenities. (1:09) You're gonna enjoy a welcoming environment surrounded by others who get life with type one diabetes. (1:15) I'm gonna host diabetes focused conversations and meetups on the days at sea. (1:19) There's thoughtfully designed spaces, incredible dining, and modern amenities all throughout the celebrity beyond.
Scott Benner (1:27) Your kids can be supervised and there's teen programs so everyone gets time to recharge. (1:33) Not just the the kids going on vacation, but maybe you get to kick back a little bit too. (1:37) There's gonna be zero judgment, real connections, and a whole lot of sun and fun on Juice Cruise twenty twenty six. (1:43) Please come with me. (1:44) You're going to have a terrific time.
Scott Benner (1:46) You can learn more or set up your deposit at juiceboxpodcast.com/juicecruise. (1:52) Get ahold of Suzanne at cruise planners. (1:54) She will take care of everything. (1:56) Link's in the show notes. (1:57) Link's at juiceboxpodcast.com.
Scott Benner (2:00) If you're looking for community around type one diabetes, check out the Juice Box Podcast private Facebook group. (2:06) Juice Box Podcast, type one diabetes. (2:09) But everybody is welcome. (2:10) Type one, type two, gestational, loved ones, it doesn't matter to me. (2:15) If you're impacted by diabetes and you're looking for support, comfort, or community, check out Juice Box podcast, type one diabetes on Facebook.
Scott Benner (2:24) Nothing you hear on the Juice Box podcast should be considered advice, medical or otherwise. (2:29) Always consult a physician before making any changes to your health care plan. (2:34) This episode is sponsored by Cozy Earth. (2:37) You can use my offer code juice box at checkout to save 20% off of your entire order at cozyearth.com. (2:45) Everything from the joggers that I'm actually wearing right now to the sheets I sleep on, the towels I use to dry myself with, and whatever else is available at cozyearth.com.
Scott Benner (2:56) Just use the offer code juice box at checkout. (3:00) A huge thanks to my longest sponsor, Omnipod. (3:03) Check out the Omnipod five now with my link, omnipod.com/juicebox. (3:09) You may be eligible for a free starter kit, a free Omnipod five starter kit at my link. (3:16) Go check it out.
Scott Benner (3:17) Omnipod.com/juicebox. (3:20) Terms and
Domino (3:20) conditions apply. (3:21) Full terms and conditions can be
Scott Benner (3:23) found at omnipod.com/juicebox. (3:27) Today's episode is also sponsored by US Med, usmed.com/juicebox, or call (888) 721-1514. (3:37) Get your supplies the same way we do from US Med. (3:41) It's like that old joke. (3:42) Like, you don't wanna get to heaven and have to say, like, I choked on a gummy bear.
Scott Benner (3:46) Like, you you know what I mean? (3:47) Like, I always say, people are like, don't you clean out your gutters? (3:50) I'm like, because I'm not going out like that. (3:51) That's why.
Domino (3:52) Twenty years of fighting for my life and all these huge things, and that's how I die.
Scott Benner (3:56) That's exactly how I took it. (3:58) You're like, you have fought through so many things, you're like, no. (4:01) This gummy bear was the orange one. (4:02) Got me. (4:03) Well That's not gonna be my story.
Scott Benner (4:05) I I people are always like, I know I'd fall off the ladder or off the roof. (4:10) And on my way down, I'd think, oh my god. (4:12) This is the story. (4:13) People Scott was cleaning the gutters, and he fell off the roof. (4:16) This is how boink.
Scott Benner (4:17) And then I hit my head on the ground. (4:19) I don't want that. (4:20) And so every year, I scrape together a little bit of money, and I pay somebody to clean my gutters out because I don't wanna be the guy that fell off his roof, and I'm pretty sure I would be. (4:27) I don't have that kind of focus.
Domino (4:29) If I have any low symptoms in the shower, I'm like, oh gosh. (4:33) I gotta get out because I'm not dying naked. (4:36) This is not how they're finding me.
Scott Benner (4:37) Right. (4:37) Three firemen like, oh my god.
Domino (4:42) One more of those. (4:43) Funny. (4:44) That's tight.
Scott Benner (4:45) The showerhead in your hand, like, the faucets, like, half up your you're flipped upside down. (4:50) You know what I mean? (4:51) Like, what happened in here?
Domino (4:52) Yeah. (4:52) So one more little funny thing. (4:56) Just talking with my husband about my one year anniversary, and I said, I made it. (5:01) I made it another year, and he affectionately calls me a cockroach. (5:07) He's like, no matter what, you just you will not die.
Domino (5:13) Life keeps trying to kill you, and you will not die. (5:15) And I said, you know, the apocalypse is gonna be me, cockroaches, craft glitter, and corn kernels. (5:23) You can't get rid of those things. (5:24) He's like
Scott Benner (5:25) he's like, Domino, listen. (5:26) I would have left you ten years ago, but honestly, I don't think you're gonna make it much longer.
Domino (5:30) Probably. (5:31) I
Scott Benner (5:31) just wanted to keep the house, but you were really chugging along. (5:34) Way to go.
Domino (5:37) I don't know.
Scott Benner (5:37) Well, I mean, you have to. (5:39) I mean, the story you tell is just it's unrelenting. (5:41) I I don't know how you wouldn't try to have I mean, you gotta try to have a good sense of humor about it. (5:45) Right? (5:46) Because Right.
Scott Benner (5:47) I mean, honestly, in some small way, you really do not some small way, in some major way, You actually know what it's like to have a chronic illness because you've been constantly impacted by something for so long. (5:59) Even though it's not chronically the same thing, it hasn't been the same thing over and over again. (6:03) You still have that, you know, decades worth of struggle knowledge.
Domino (6:07) Absolutely. (6:08) Well, and literally facing mortality over and over.
Scott Benner (6:13) No. (6:13) It's crazy.
Domino (6:14) You know, stopped breathing. (6:16) I mean, just the seizures bleeding out. (6:19) There just so many things, and it is cliche. (6:23) But well, one of my favorite sayings, which I'm gonna get tattooed is memento mori, which is remember you died. (6:34) And going through all this, I do not waste my energy on bullshit.
Scott Benner (6:40) Is that not I bet hey. (6:42) I don't currently have a glucagon sponsor, so I can just say to you, have you tried micro dose microdosing glucagon for your lows?
Domino (6:50) I have not. (6:52) I just switched two weeks ago to a new endocrinologist. (6:58) Yeah. (7:00) And he's supposed to specialize a little bit more in pancreatic endocrinology. (7:07) So the priority is, yeah, working on those those.
Domino (7:12) I'm waiting on a few more labs, and then we're gonna have a care plan. (7:15) So that is something I'm gonna talk to him him about.
Scott Benner (7:18) Good. (7:18) Yeah. (7:18) What glucagon do you have in the house right now? (7:20) Is it the Baqsimi or the Jeuveau? (7:22) Yeah.
Scott Benner (7:22) You have to get the Jevoke, and then oh my god. (7:24) What a freeing thing. (7:25) Do you guys know I was not allowed to say the Gvoke HypoPen? (7:29) I had to say Gvoke HypoPen. (7:32) By the way, they're great sponsors.
Scott Benner (7:33) I hope they come back one day. (7:35) But, like, they were lovely, and I love the HypoPen, and my daughter still carries it. (7:39) But you weren't allowed to say the Gvoke HypoPen. (7:42) I don't I could never get a completely straight answer why. (7:45) Was something about branding.
Scott Benner (7:46) It always came from legal. (7:47) Like, oh, you said the. (7:48) And I'm like, well, it's not a word that fits in the sentence without the. (7:52) And they'd be like, no. (7:53) No.
Scott Benner (7:53) It's Gvoke HypoPen. (7:54) So anytime you hear me say that, it it sounds awkward. (7:57) It wasn't my fault. (7:58) But my point is is that I'm happy to be able to just say it now. (8:01) You gotta get yourself.
Scott Benner (8:04) Now I'm I'm so brainwashed.
Domino (8:05) I almost said Gvoke HypoPen without the, but but
Scott Benner (8:08) but they come in syringes, right, with liquid. (8:11) And if that doctor is a little forward thinking, then all you gotta do is put that liquid into, like, a vial and then draw it out with an insulin needle and bump yourself with it a little bit and get yourself out of those sticky lows faster. (8:23) Yep. (8:23) Yeah. (8:24) So you're already on that.
Scott Benner (8:25) You're gonna that's the conversation you wanna have.
Domino (8:27) We're on it.
Scott Benner (8:27) Good. (8:28) Good. (8:28) Also, nothing here on the juice box podcast should be considered advice, medical or otherwise. (8:31) Always consult a physician before making any changes to your health care plan. (8:34) Good.
Scott Benner (8:34) Good. (8:35) So you know to do that. (8:36) Alright.
Domino (8:36) Yes.
Scott Benner (8:37) Scott didn't have to tell you that. (8:38) The did you where did you figure that out though? (8:40) Like, community? (8:41) Like, people talking?
Domino (8:42) Yes. (8:43) Yep.
Scott Benner (8:43) Yeah. (8:44) You making friends in the group?
Domino (8:46) Not outside of there. (8:47) I interact there.
Scott Benner (8:48) But No. (8:48) I'm not saying you're not bringing them you're not bringing them home to Colorado to ski, but, like, you but there's some people in the group that I can imagine you would get along really well with.
Domino (8:57) There's some interactions that are that are good.
Scott Benner (8:59) Good.
Domino (8:59) I still am a little standoffish. (9:03) Not, I guess, just learning. (9:06) Yeah. (9:06) But I still have so much to learn for myself that I still am cautious with giving advice on some things. (9:14) I just try to be and help people not feel alone.
Scott Benner (9:18) You very much do that. (9:19) I well, I appreciate you in there a lot. (9:21) Actually, I hope I won't I I should say that. (9:23) Absolutely. (9:23) We just recently added a group expert, and would it surprise you to know that your name was in the mix?
Domino (9:30) Oh, goodness.
Scott Benner (9:32) Yeah. (9:32) Because just because of the the way you are. (9:35) Like, I I don't even know if you like, you know, we didn't know how long you had diabetes or anything like that. (9:39) But, like, while we were talking, we kinda have this. (9:42) Isabelle and I have a conversation where I'm like, you know, have you identified anybody who you think might be, like, a great, like, group expert?
Scott Benner (9:48) We throw around, usually, about a dozen names and then invite I think we invited one or two people last time. (9:56) And, yeah, your your name was right in there. (9:58) So we were, we're waiting for you to have diabetes a little longer, and then we might ask you.
Domino (10:03) Oh, that's very kind.
Scott Benner (10:04) Yeah. (10:05) And be please, if the time ever comes,
Domino (10:07) you feel free to say no. (10:08) Thank you. (10:08) But, like,
Scott Benner (10:09) it's an interesting thing to choose a stranger from interactions in a Facebook group when you're what you know you're asking them to do is, like, you know, pay a little more attention, you know, answer this and that when you find it. (10:25) If people, you know, seem confused, you can point them towards things. (10:28) Like, you know, you're kind of like a an usher at an old movie theater. (10:31) You know? (10:32) See somebody wandering around, you go, bathroom's over here, that kind of thing.
Domino (10:36) Well, they're your group experts are excellent.
Scott Benner (10:38) They are really good. (10:39) Yeah.
Domino (10:40) They are so good.
Scott Benner (10:40) Everybody does a great job. (10:42) Yep. (10:43) Just dumb luck. (10:45) Or or you know what? (10:46) I I'm gonna stop doing that.
Scott Benner (10:47) Somebody told me to stop doing that. (10:49) I I did this on purpose. (10:50) I picked every one of those people. (10:52) And and if I didn't pick them, they were picked by somebody I picked. (10:55) So we're we're very purposeful about it.
Scott Benner (10:58) I should probably stop sounding like, oh, I just thought I can't believe it's just happening. (11:02) But, like, I I feel like that in my heart, but in my head, I know we made a lot of decisions that got us to where we are. (11:07) So
Domino (11:08) Well, whatever it is, it's working.
Scott Benner (11:11) Domino, listen. (11:12) Here's the here's the secret. (11:14) It's gonna sound distasteful. (11:15) It's me. (11:16) I'm the secret.
Domino (11:21) Secret time.
Scott Benner (11:22) Secret time. (11:23) My genius is overwhelming the situation is what's up. (11:26) I don't know. (11:27) I honestly just think I have I don't know. (11:29) I don't really know what it is.
Scott Benner (11:30) I just know that since I've been a young person, if people have problems, they ask me, and the thing I say generally helps them. (11:36) And I don't know how to take credit for that. (11:38) So, anyway, I I want to, but I I wouldn't know how to. (11:43) This might sound like a humble brag now, but I'm actually trying to I'm I'm trying to be open in explaining to people listening that this thing that's helping you is on purpose, and yet at the same time, it feels very random to me at times, because I'm just I don't know how to like, this is gonna sound like hippy dippy, but, like, I just I'm just floating on a cloud, and I'm just staying on it. (12:08) You know?
Scott Benner (12:08) Like, the wind blows, and I kinda know which way to lean. (12:11) And and it's all fueled by your story and everybody else's because my my goal every day is do something better for you guys. (12:24) I spent a little time yesterday just to give you an idea of, like, what that might mean. (12:29) So I put out an episode two days ago with the Medtronic, so the MiniMed CEO.
Domino (12:35) Mhmm.
Scott Benner (12:36) And she was that conversation took a month or two to get together, and it was completely led by my questions. (12:47) So I, you know, months ago, went to the group and said, hey. (12:51) If I could talk to the CEO of this company, what would you wanna ask? (12:54) I took all their questions. (12:55) I reformed their questions into my own questions.
Scott Benner (12:57) I sent those questions to her. (12:59) I said these questions seem okay with you. (13:01) And they were a lot about, like, hey. (13:03) You know, what the hell happened over there at Medtronic? (13:05) Like, you know what I mean?
Scott Benner (13:06) And, like, and where are you going now? (13:08) And how'd you get stuff that could be uncomfortable for a CEO to answer that you wouldn't normally think they would answer. (13:15) But she was up for it. (13:16) Right?
Domino (13:16) Nice.
Scott Benner (13:17) And she has the conversation, listens you know, we get it all done. (13:21) I want you to know that that conversation is exactly how we spoke it. (13:25) Like, a lawyer didn't cut anything out of it. (13:26) Nothing was removed from it. (13:28) It went up the other day, and I listened back to it.
Scott Benner (13:32) And it's interesting because when you're having the conversation, like, even with you and I right now, like, my experience leading this conversation or being a part of this conversation is different than a listener will have later even if I'm the listener. (13:44) So I went back and listened to it the other day, and I thought, this person kinda sneaky gave a master class on taking responsibility and moving on. (13:54) Right? (13:56) Like and she did it very, very, very well and seemed very genuine while she was doing it to me. (14:02) So I took that.
Scott Benner (14:04) I went back and grabbed the transcript from it, fooling around with Google Gemini lately. (14:09) I have not left you chat GPT. (14:11) I'm just trying other people. (14:13) And I went into Gemini, and I was like, hey. (14:15) Do a deep dive on this transcript.
Scott Benner (14:19) I'm the host. (14:20) Here's the person who I'm interviewing. (14:23) I get the feeling that this this is good for other people in her position to hear. (14:30) Tell me why. (14:32) Diabetes comes with a lot of things to remember, so it's nice when someone takes something off of your plate.
Scott Benner (14:39) US Med has done that for us. (14:41) When it's time for Arden's supplies to be refreshed, we get an email. (14:45) Rolls up and in your inbox says, hi, Arden. (14:48) This is your friendly reorder email from US Med. (14:51) You open up the email.
Scott Benner (14:52) It's a big button that says click here to reorder, and you're done. (14:56) Finally, somebody taking away your responsibility instead of adding one. (15:00) US Med has done that for us. (15:02) An email arrives, we click on a link, and the next thing you know, your products are at the front door. (15:08) That simple.
Scott Benner (15:09) Usmed.com/juicebox or call (888) 721-1514. (15:18) I never have to wonder if Arden has enough supplies. (15:21) I click on one link. (15:22) I open up a box. (15:24) I put this stuff in the drawer, and we're done.
Scott Benner (15:26) US Med carries everything from insulin pumps and diabetes testing supplies to the latest CGMs like the Libre three and the Dexcom g seven. (15:36) They accept Medicare nationwide, over 800 private insurers, and all you have to do to get started is call (888) 721-1514 or go to my link, usmed.com/juicebox. (15:50) Using that number or my link helps to support the production of the juice box podcast. (15:55) This episode is brought to you by Omnipod. (15:58) Would you ever buy a car without test driving at first?
Scott Benner (16:01) That's a big risk to take on a pretty large investment. (16:05) You wouldn't do that. (16:05) Right? (16:06) So why would you do it when it comes to choosing an insulin pump? (16:10) Most pumps come with a four year lock in period through the DME channel, and you don't even get to try it first.
Scott Benner (16:16) But not Omnipod five. (16:17) Omnipod five is available exclusively through the pharmacy, which means it doesn't come with a typical four year DME lock in period. (16:25) Plus, you can get started with a free thirty day trial to be sure it's the right choice for you or your family. (16:32) My daughter has been wearing an Omnipod every day for seventeen years. (16:36) Are you ready to give Omnipod five a try?
Scott Benner (16:38) Request your free starter kit today at my link, omnipod.com/juicebox. (16:44) Terms and conditions apply. (16:45) Eligibility may vary.
Domino (16:47) Full terms and conditions can
Scott Benner (16:48) be found at omnipod.com/juicebox. (16:52) Find my link in the show notes of this podcast player or at juiceboxpodcast.com. (16:57) It gave me back a, you know, a research paper on the transcript and came to the conclusions that I was coming to when I was listening to it. (17:05) So now I have that information. (17:07) I know that, like, what the community wanted to know filtered through my mouth into her ears out her mouth turned into a good road map for how to be a leader in this space.
Scott Benner (17:19) And now I'm gonna write an article. (17:22) And to be perfectly honest with you, I'm not gonna write it. (17:24) I'm gonna let the chatbot write it. (17:27) I'm gonna write an article based on all of that, and then I'm gonna put it up. (17:31) And then every CEO of every company you can think of, trust me, is gonna say it.
Scott Benner (17:36) And maybe that moves the needle for us all, you know, people living with type one diabetes or loving somebody with type one diabetes. (17:42) Maybe that moves the needle somewhere for us in ways that you'll never know, and I think it will. (17:48) So, like, but all of that comes from my ability to spend so much time getting up in the morning and thinking, like, what would help everybody? (17:57) Like, even the stuff you wouldn't expect. (17:59) And so that part is very much on purpose.
Scott Benner (18:02) So that that's the kind of stuff I'm doing during the day among other things that, you know, you guys might not know about. (18:10) Also, the same time I'm talking to you about that, I'm getting text messages from Isabelle because some lady is going cuckoo in the, oh. (18:19) Oh, no. (18:20) It's in the group. (18:21) But don't worry, we took care of it.
Scott Benner (18:22) Oh, this is even worse. (18:24) Oh, she's a doctor, and she said the wrong thing. (18:27) Oh. (18:29) Yikes. (18:29) Yeah.
Scott Benner (18:30) So but, again, a great a great chance for learning. (18:34) Right? (18:34) Like, somebody posts a question. (18:37) It's about how Omnipod five works. (18:40) And don't be bored by this, Domino.
Scott Benner (18:43) Give me one more because this is this is really important. (18:45) So somebody posts a question about how Omnipod five works. (18:48) Couple of my group experts come along and say, you know, respond to a post. (18:53) Suppose this person says you can make a change to this setting or this setting, blah blah blah, and they're wrong. (18:59) Right?
Scott Benner (18:59) The person that makes the the statement's wrong. (19:01) My experts come in very kindly, like, pointed out, like, oh, this doesn't do that, what you're saying. (19:06) It does this, blah blah blah. (19:07) And the person fires back and says, listen, this is my profession. (19:11) Kindly, you're misunderstanding.
Scott Benner (19:12) And I was like, so how do you dive into this now? (19:17) Right? (19:18) Right. (19:18) So the person is if you're listening, I'm sure you are, is posting anonymously. (19:22) But for all of you who do that, I can see who you are still.
Scott Benner (19:25) Okay? (19:26) Nobody else can, but I can. (19:28) So
Domino (19:28) Secret time.
Scott Benner (19:29) Yeah. (19:29) Secret time. (19:30) I know your name, and there's nothing you can do about it. (19:32) It's not a thing I'm doing. (19:33) It's how Facebook works.
Scott Benner (19:34) I I am the admin. (19:35) I get to see your name even if you decide to post anonymously. (19:39) So this person, very well intended, like and they weren't far off. (19:43) They just they're saying to make a setting change that won't impact the automation, but they're saying that it will and it won't. (19:50) And so I don't know how to approach this now because I don't wanna seem like I'm just, like, defending my experts.
Scott Benner (19:56) Right? (19:56) Mhmm. (19:56) And I don't want who, by the way, they're called group experts because that's what Facebook calls them. (20:01) What they really are is nice people trying to help you.
Domino (20:03) And Sure.
Scott Benner (20:04) You know, in their free time. (20:06) And so I don't wanna just come off like I'm just I'm just, you know, circling the wagons because I'm not. (20:12) And I don't wanna say, nah, nah, nah, nah. (20:14) You don't know what you're talking about. (20:15) So I'm like, how do I do this?
Scott Benner (20:17) And again, I used AI. (20:19) I don't know why you're all not using I took a a a screen capture of the entire conversation. (20:25) I put it into an AI model. (20:27) I also gave it access to Omnipod's website, the three episodes that I've I recorded with Omnipod about setting up Omnipod five. (20:36) And I just said, in this exchange, you know, please identify things that are being said correctly and the things that aren't being said correctly.
Scott Benner (20:47) Friends, I placed my order at cozyearth.com. (20:50) They're today's sponsor, and I'm here to tell you about them. (20:52) Use my offer code juice box at checkout when you buy, and you'll save 20% off of your entire order. (20:58) That's everything in your cart at cozyearth.com. (21:01) Save 20% with the offer code juice box.
Scott Benner (21:04) Now why am I excited? (21:06) Well, I just ordered the cozy earth blanket. (21:09) It's the viscose bamboo blanket. (21:12) I'm super excited about it. (21:14) It looks comfy as can be, it's gonna go so well with the sheets that we already have from Cozy Earth.
Scott Benner (21:19) Now, yeah, I'm a bit of a a Cozy Earth convert, I guess. (21:23) I'm sitting here in my joggers. (21:25) I used my towels coming out of the shower this morning. (21:27) I slept on my sheets last night. (21:29) Slept like a baby, by the way.
Scott Benner (21:31) Cozyearth.com. (21:33) They pretty much have everything you want. (21:35) Use the offer code juice box to save 20% at checkout on skin care, women's and men's clothing, bath and sleeping accessories. (21:43) And don't forget, Valentine's Day is coming up quickly. (21:46) Get those pajamas.
Scott Benner (21:48) Cozyearth.com. (21:49) Use the offer code juice box at checkout to save 20% off of your entire order. (21:54) It gave me back what it gave back. (21:56) The group experts were right, and the person that posted was wrong. (21:59) And so I just said, hey.
Scott Benner (22:00) Listen. (22:01) It's a great learning opportunity for everybody. (22:03) Like, everything about Omnipod five, everyone doesn't understand all the time, even at all levels. (22:08) This is the research that I did on this, literally, this thread here, this subthread. (22:13) And, you know, I hope this helps everybody.
Scott Benner (22:16) Also, and here's the part the reason why I'm telling you about it, Scottie's already ahead of that. (22:21) Okay? (22:21) So I've been talking to Omnipod for six months about doing another series that explains the picadillos, the inner workings of the Omnipod five because I went to them and I said, I still think there's confusion about how the algorithm works. (22:37) And I see a lot of people talking about changing settings that I know don't touch automation, that only change manual. (22:45) And then I I said I'm worried that people are, you know, turning the volume up, turning the volume up, not hearing the difference, and not realizing that if they ever flip back into manual, they're gonna make themselves low probably.
Scott Benner (22:57) And I was like, I think we need to do that. (22:59) So I have been working on that for a number of weeks with Omnipod. (23:02) We're gonna record it soon, and it's gonna come out as content to help people understand their algorithm better.
Domino (23:08) That's the thing I've
Scott Benner (23:09) been working on for six months because I have time to pay attention to the little tiny details because this is my job. (23:16) Right? (23:16) And that's gonna end up helping a lot of people. (23:18) And if you're listening and you think, no, not, Scott. (23:20) I will tell you that my Omnipod five series has hundreds of thousands of downloads.
Scott Benner (23:25) So, like, this is gonna help a lot of people. (23:29) Again but it's not happening anywhere except in my head because I'm the only one dopey enough to sit around all this all day and, like, just I don't know. (23:38) Try to take a macro and micro view of what's going on at the same time and just wonder again out loud, like, what would help all these people. (23:45) So anyway, we're doing that. (23:46) Next week, we're we're doing a a pro tip series with Tandem.
Scott Benner (23:50) I'm trying to get Medtronic to do one too. (23:53) I think they will. (23:54) Yeah. (23:54) I'm just trying to get information out there that can maybe just help you guys a little bit. (23:58) You know?
Scott Benner (23:59) So, anyway, I don't know where I'll I I I just had a lot of that in my head, Domino. (24:02) I apologize.
Domino (24:03) No. (24:03) It's all no. (24:04) It's all good.
Scott Benner (24:04) Good. (24:05) I mean, you like the podcast. (24:06) It is. (24:06) Yeah.
Domino (24:07) I think it's information that so many of us are missing, and that's what brings most of us to the podcast, like you said. (24:15) Yeah. (24:16) Where are you gonna get
Scott Benner (24:16) that otherwise? (24:17) Like, I mean, it's all written down somewhere in an FAQ or something, but people don't find that stuff. (24:22) And No. (24:23) And they don't know to ask. (24:25) Like, I think that's part of the of the storytelling style of the podcast and why it's helpful is because the conversations will just randomly lead the things.
Scott Benner (24:33) You'll hear them offhandedly, and then you pluck them later and use them from your memory. (24:38) But, like, you don't know to ask that question. (24:41) Right? (24:41) No. (24:41) Like, yeah, you don't know that, you know, this setting, you know, impacts auto, but this setting doesn't or something like that.
Scott Benner (24:47) And then and and certainly the person who posted, if if you hear this, like, they're not they're not bad people. (24:53) They're not spreading misinformation. (24:55) They're saying something out loud they believe is true.
Domino (24:58) Right.
Scott Benner (24:58) You know? (24:59) So Right. (25:00) And I'm looking here. (25:01) Here's the doctor. (25:02) Look at that.
Scott Benner (25:03) Yeah. (25:03) What about that? (25:04) Because my people are doing the background search right now. (25:07) I got people.
Domino (25:08) Nice.
Scott Benner (25:10) Yeah. (25:11) This is a physician.
Domino (25:13) Oh, wow.
Scott Benner (25:14) So and hopefully, what this person takes from it is, oh, I didn't know that. (25:19) I'll stop saying that now.
Domino (25:20) Right.
Scott Benner (25:21) You know, instead of instead of, you know, maybe
Domino (25:24) Committed to the wrong thing?
Scott Benner (25:25) Pushing back or doubling down or pushing back or getting upset. (25:29) Like, there's no reason to be upset. (25:30) Like, that's a not a thing a lot of people know so much so that, you know, we're gonna make more content about it to make sure that people do know.
Domino (25:36) Well, and I think I think people are. (25:39) And it's a tough balance, though. (25:41) I know even to have the courage to start looking for information, especially in my situation, you know, without my endocrinologist and all the new things I was trying to navigate. (25:53) It's scary to go down the rabbit hole sometimes and worry about getting false information and what applies to my specific body, my situation. (26:05) Yeah.
Domino (26:06) But it's it's really important that that stuff's out there.
Scott Benner (26:10) Well, you're you're just a 100% correct that the idea of like, for many people, it should should be for everybody. (26:17) The idea of going out into the world and just starting to ask questions because not sure what's gonna come back to you Right. (26:24) That's a hard thing to get past. (26:26) Like, you know, how do you know if what you just heard is right or right for you? (26:31) Or Right.
Scott Benner (26:32) You know, like, mean, people can seem I mean, this again, no disrespect, but this is a doctor.
Domino (26:37) Right.
Scott Benner (26:38) And they're saying, no. (26:39) You're wrong. (26:39) I know. (26:40) I do this professionally. (26:42) And you could look and go, that's a doctor.
Scott Benner (26:44) And well, you can't. (26:45) I can. (26:46) And you say, like, you know, well, okay. (26:49) They must be right, but there they go. (26:51) Not right.
Domino (26:52) So And especially with my history of misdiagnosis and a rare diagnose
Scott Benner (26:58) Yeah.
Domino (26:59) Jeez. (26:59) Even getting treatment now, most people have not heard of an acidioblastoma. (27:06) And then you add all the other, you know, complications and going out to try to find information on type three c, which is not as common Yeah. (27:18) With the acidioblastosis, with the digestive stuff going on. (27:24) I just think, ugh, there you know, there's so many caveats with it.
Scott Benner (27:28) No kidding. (27:29) You are probably finding yourself in a situation in a doctor's office where you're the you're the expert on the problem. (27:35) Yes. (27:36) And, yeah, and you don't have hardly any of the information you need. (27:40) And you're and you're like, look.
Scott Benner (27:41) I I'm still having a problem here. (27:43) I've hit my ceiling. (27:44) I can't go any further. (27:45) I need your help. (27:46) But first, let me explain to you what my situation is because I know you don't know it.
Domino (27:50) Well, it's
Scott Benner (27:51) Tough place
Domino (27:51) to start. (27:52) With the doctor every time. (27:53) I mean, that morning, my doctor being out, I mean, he listened to me. (27:59) He helped me get a rare diagnosis.
Scott Benner (28:02) Yep.
Domino (28:02) Brought people in to bring tests to get that rare diagnosis. (28:07) It was a lot, and I'm so thankful for him. (28:09) And then it's I've been grieving him being out all this time.
Scott Benner (28:14) No kidding.
Domino (28:15) And the person that helped me and not only helped me to get this rare diagnosis, but also knows my other twenty years of history.
Scott Benner (28:24) Right. (28:25) And you don't and every time you start over, bet you feel like you the first thing you wanna say is, like, look. (28:28) I'm not crazy. (28:29) Just listen for a minute.
Domino (28:30) Right.
Scott Benner (28:31) Right. (28:31) Because I'm gonna tell you a long story that you're probably not gonna follow. (28:34) I had to live it a 100 times before I even understood it, but here I am trying to explain it to you in five minutes.
Domino (28:39) Well, and I have gotten that that I'm crazy. (28:41) And I think, well, alright. (28:44) This is why I'm crazy. (28:45) This is because you guys I have to go to therapy because all of you guys
Scott Benner (28:48) You're telling me I'm wrong all the time about the thing I lived through, and I know for sure it's happening.
Domino (28:53) I told my husband that's what I'm sending everybody, a card that just says, I made a donut to my therapist in your name. (29:02) Merry Christmas.
Scott Benner (29:03) That's a great idea. (29:07) And if I'm found dead, it was a bear attack. (29:09) I just want you to know.
Domino (29:10) Yes. (29:10) Absolutely.
Scott Benner (29:11) They're they're getting into the bedroom somehow. (29:13) I have no idea. (29:15) If you live in Colorado, people might be like, oh, there's probably bears
Domino (29:18) there. (29:18) Yeah. (29:19) Nope. (29:20) Well I'm a catcrowch. (29:21) I don't think even gummy bears are gonna give me so far.
Domino (29:24) Yeah.
Scott Benner (29:25) You're not you're not going down from a gummy bear. (29:27) By the way, what kind of gummy bears do you like?
Domino (29:29) The Albany's.
Scott Benner (29:30) Yeah. (29:30) It's really the only, it's the only decision to be made. (29:33) Yeah. (29:33) They put the price up recently. (29:35) I don't love it.
Domino (29:36) No. (29:36) Same. (29:37) Yeah. (29:37) Yeah. (29:37) Yeah.
Domino (29:37) Used to be right?
Scott Benner (29:38) You got the big five pound bag on Amazon for nothing.
Domino (29:41) Right. (29:41) Yeah. (29:41) Very good.
Scott Benner (29:42) Because the bag of sugar, by the way wait or shake me down for it. (29:45) Then what happened? (29:46) Well, I know what happened. (29:47) The people started yelling tariffs. (29:49) They were like, oh, can we charge more for this?
Scott Benner (29:50) Awesome. (29:51) Right. (29:51) And they just doubled the price. (29:54) And still, I still order it. (29:56) It's I can write down in our pantry.
Scott Benner (29:58) There's a a big, like, sealed can like, plastic container with a lid on top of it that seals, like, keeps it's airtight, you know. (30:05) And it's just, like, five it's just, like, five pounds of of gummy bears in there. (30:10) Think of it as medicine. (30:11) Like, people generally leave it alone, But Arden actually, Arden sorry. (30:15) Arden got her period and her blood sugar got a little low last night.
Scott Benner (30:18) Mhmm. (30:18) And the middle of the night, like, she was, like, taking care of it. (30:21) And then she's, like, texted me. (30:22) She's, like, hey. (30:23) I'm still a little low and, like, I don't have anything up here, but I don't feel good.
Scott Benner (30:26) Like, there's only it's, her belly hurt from her period. (30:28) There was not too many things she was interested in trying to eat at that moment. (30:32) And so I went downstairs and, like, did a, like, a a flyby grab. (30:36) I grabbed the, like, a banana. (30:37) I grabbed the juice box.
Scott Benner (30:38) I grabbed and I said, golly, grab some gummy bears. (30:41) And I'm not gonna even lie to you. (30:42) Domino, it was, like, 03:30 in the morning, and I I grabbed out some gummy bears. (30:47) I put them on the counter. (30:47) I put the lid back on.
Scott Benner (30:48) I looked down, and I just, like, took two gummy bears. (30:50) I was like, I'm gonna eat these. (30:51) And I popped in my mouth, I was like, this is delightful. (30:53) And then I'm chewing on these two gummy bears, heading upstairs, the stuff, and I'm thinking like, bet you everybody's life is not like this.
Domino (31:02) So What's your what's your favorite flavors?
Scott Benner (31:04) I like to mix them. (31:06) I like to mix light colors with dark colors to see what I
Domino (31:09) I'll do that too. (31:11) But
Scott Benner (31:11) Yeah. (31:12) Dark green with a light yellow. (31:13) Red with blue. (31:16) A little too much. (31:17) Red with yellow.
Scott Benner (31:18) Yes. (31:18) Blue with green. (31:19) Sometimes, like, I just pop them in, like, little this might be a look into my brain, but I I don't commit any of it to memory. (31:27) I just I match them by by color.
Domino (31:30) Hey. (31:31) Whatever works. (31:32) I know.
Scott Benner (31:33) But it it usually works out. (31:34) It's the same thing when people say to me, how did you know this was gonna work? (31:37) And I'm like, I don't really. (31:38) Like, I still haven't
Domino (31:39) Mhmm.
Scott Benner (31:40) Because we took a little time to talk about it today. (31:42) Again, I'm I'm just being honest. (31:45) Like, a lot of my decisions work out, but I don't know why. (31:48) And when people ask me why, like, how did you come to that decision? (31:52) I don't know.
Scott Benner (31:53) And as a matter of fact, when I watch other people think about the same thing, I realize they're considering things and making decisions and considering things and making decisions to coming to an end. (32:05) I just look at something till it makes sense to me, and then I do it. (32:09) But there's no background thinking. (32:13) I don't know how to explain to you what I experience.
Domino (32:16) How much of that do you think is the thought the thoughtfulness and the preparation before you act on it? (32:23) But then also, a lot of people are afraid to act on it. (32:27) And I think you have a confidence and maybe just a go for it kinda attitude. (32:32) So the thoughtfulness before it and working it all how you want it to go, but then the ball is to just do it.
Scott Benner (32:40) So maybe the pieces have already been thought out ahead of time, and I just need to, like, lump them together and then go in the direction they point to.
Domino (32:48) I think so. (32:48) I mean, it's working.
Scott Benner (32:49) Yeah. (32:49) I mean, yeah, I don't but seriously, like, what you just said, like, you're that's you trying to wonder how my brain works and me sitting here going, I really don't know. (32:57) Yeah. (32:58) We all had to go outside and pick something up off the ground, and there was a lot of it or something. (33:03) And you might step back and go, well, this stuff all has to go to the curb, so we're gonna have to put it into a wheelbarrow.
Scott Benner (33:09) And that wheelbarrow's over there, and then we'll like, and you might go like, you might as you're doing it, think those things through. (33:15) I just start moving, and it works out. (33:17) And I know this is sounds like it probably sounds douchey to people, like, who are listening. (33:21) And trust me, it does to me too. (33:22) Also, that's a word from the seventies.
Scott Benner (33:24) But but seriously, like, I don't understand. (33:29) I just all I all I know is I look up and I go, this is the right thing to do. (33:34) I do it and it works. (33:36) And
Domino (33:36) there's highly intuitive.
Scott Benner (33:37) I have just learned to trust myself. (33:39) Yeah. (33:40) Yeah. (33:40) That's all. (33:41) I don't know why I'm done.
Scott Benner (33:42) I'm done trying to figure out why. (33:44) I mean, it's easy to say, like, a lot of hard work and, like, you know, hours and thoughtfulness went into the podcast. (33:51) But this thing is this is unlikely. (33:54) Like, this entire thing, that group of people, the hundreds of thousands of people who listen and talk to each other, like, every day under the umbrella of the thing that I made. (34:03) Like, it's completely unlikely to have grown like this, and I didn't do one bit of it on purpose.
Domino (34:10) So That's incredible.
Scott Benner (34:12) Yeah. (34:12) Just dumb luck.
Domino (34:13) Every time the welcome new members, 150 or whatever it is, I'm like, holy crap. (34:20) Every time.
Scott Benner (34:21) Me too.
Domino (34:21) A 150 more? (34:23) Do you watch everybody loves Raymond?
Scott Benner (34:25) Yeah. (34:25) I've seen it. (34:26) Yeah. (34:26) Yeah. (34:26) I probably saw the whole thing first run.
Domino (34:28) Well, just the dad in there, Tommy says, holy crap. (34:32) That's what I'd be saying in my best Frank Perrone voice. (34:35) Yeah. (34:35) Yeah.
Scott Benner (34:35) Yeah. (34:35) I can't I can't I can't do the voice, but I know what you're talking about. (34:38) I think I think the same thing. (34:40) I'm like, my god. (34:40) Again?
Scott Benner (34:41) Again? (34:41) Again? (34:42) That's awesome. (34:42) Yeah. (34:43) It really is crazy.
Scott Benner (34:44) I mean, just the other day, like, today's episode is is doctor BeachJem, and she I
Domino (34:50) listened already.
Scott Benner (34:50) Raul, did you? (34:51) And she wasn't she lovely?
Domino (34:53) Terrific.
Scott Benner (34:53) Right. (34:54) And she is I mean, no other way to put it. (34:57) She is Internet famous, like, really Internet famous. (35:00) And my wife was like, you should try to get her on. (35:04) And I'm like, you think she's gonna come on my podcast because you like it?
Scott Benner (35:07) Like, because you like her thing? (35:08) I was like, what what's my pitch here? (35:10) She's like, I don't know. (35:10) Ask her. (35:11) I was like, that's not gonna work.
Scott Benner (35:12) And a couple weeks ago for, diabetes awareness month, she put up a post, and and I was like, oh, I wonder if we could get her attention on this. (35:21) So I just went back to the group, and I was like, hey. (35:23) Can you guys just kinda go ping her in this post and see if she'd come on the podcast? (35:27) Well, I didn't even understand the power of my of my words.
Domino (35:31) Messaged her.
Scott Benner (35:32) Yeah. (35:32) Yep. (35:32) The well, she was like, hey. (35:35) Listen. (35:36) If you can tell these people to leave
Domino (35:37) me alone, I'll come on the podcast.
Scott Benner (35:38) No. (35:38) She wasn't like she was very nice. (35:39) But, like, but we, it was enough that she took it seriously. (35:44) You know? (35:44) And she doesn't know me.
Scott Benner (35:46) Like, you know
Domino (35:46) Yeah.
Scott Benner (35:47) And you can you can email somebody or message somebody and go, hey. (35:51) Look. (35:51) I I have the number one diabetes podcast in the world. (35:53) This is how many downloads it has. (35:55) I'd love you to come on blah blah blah.
Scott Benner (35:56) But there people ignore I ignore that stuff all the time. (35:58) I get I get 10 emails like that a day. (36:00) I don't I delete. (36:02) So you don't bother sending them out if you've got any common sense because you know that somebody else is gonna do the same thing. (36:07) So you guys just all, like, put a bug in her ear and she was, like, right on.
Scott Benner (36:11) And, and then we had a really good time talking.
Domino (36:13) She was fabulous.
Scott Benner (36:14) Yeah. (36:14) And she was really great and thought and I think you could hear in there a little bit too. (36:18) Like, I made her think about a couple of things too Yes. (36:20) Which was my goal to spread your guys' need, my daughter's need into the world a little more. (36:27) See?
Scott Benner (36:27) It's on purpose.
Domino (36:28) Abs absolutely. (36:29) Well, the thing that stuck out the most, it was all great, but you sharing about a 40 year old mom that had several kids
Scott Benner (36:38) Yeah.
Domino (36:39) And the texting or calling back and forth, and her saying, why didn't nobody tell me this? (36:44) And I just somebody was cutting onions.
Scott Benner (36:48) Well, you must intersect with that feeling significantly because why didn't somebody help you faster sooner?
Domino (36:55) Right.
Scott Benner (36:55) Yeah. (36:56) Well,
Domino (36:57) they're still learning. (36:58) They're doing a lot of research. (36:59) In fact, some of my surgical videos, they're gonna use towards more research
Scott Benner (37:05) Really? (37:05) For this. (37:06) So That's wonderful. (37:06) Well, it's nice of you to let them do that. (37:09) I'll tell you that you have not heard on the podcast yet, but you will hear.
Scott Benner (37:13) Alright. (37:14) Ready, Domino?
Domino (37:15) I'm ready.
Scott Benner (37:15) I'm gonna tell you something that nobody else knows.
Domino (37:17) Okay.
Scott Benner (37:18) No. (37:18) I need another drink. (37:19) I've already said this twice in two recordings, so I'm it's gonna come out, but it still feels strange to say out loud. (37:25) Probably for the last twenty years, I have battled with hemorrhoids.
Domino (37:31) Okay.
Scott Benner (37:31) And not just like, oh, that itches or it feels pokey or, you know, the paper got a little bloody once or twice. (37:39) Like, I will start to bleed and not stop for hours sometimes. (37:45) Like like, red blood, like, laying on the floor half upside down, like,
Domino (37:49) you know pause you just a second. (37:51) Good. (37:51) I've had two surgeries for hemorrhoids.
Scott Benner (37:54) Well, you're gonna appreciate this then.
Domino (37:56) Yes. (37:56) So I my deepest condolences.
Scott Benner (37:59) So a thing that no one talks about, and I mean no one. (38:02) Right? (38:02) And I tried some twenty some years ago to get them banded. (38:07) It was incredibly painful. (38:08) It did not last very long.
Domino (38:10) Yes.
Scott Benner (38:11) And then I suffered again. (38:14) Most of the suffering is, like, pressure, knowing that there's gonna be bleeding multiple times of year that sometimes you can't get under control for, like, a week. (38:22) You have to, like, stop eating to make it go, like, like, a it's terrible. (38:26) Right?
Domino (38:27) Mhmm. (38:27) Yes.
Scott Benner (38:27) And then I finally was like, oh, I'll go do the banding again. (38:31) Now listen. (38:31) For clarity, for your understanding of what what the banding means, is that someone puts a speculum in your ass and opens it up and then goes in there with a gun with a tiny little rubber band on it that's super strong and slips it over the hemorrhoid then lets it go, and then it chokes it off and it falls off. (38:48) It hurts like a son of a bitch is what I'm gonna tell you. (38:52) Okay?
Scott Benner (38:52) The whole thing, not good, and it doesn't last.
Domino (38:55) Right. (38:56) So I know.
Scott Benner (38:56) Yeah. (38:57) So the last five years, I've just given up. (39:00) I was like, oh, this is how I'll die one day. (39:02) Like like, someone's gonna come in
Domino (39:03) and go somebody murdered him
Scott Benner (39:04) and my wife is gonna go, oh, no. (39:05) Let me see
Domino (39:06) the picture. (39:06) No. (39:06) No. (39:06) No. (39:06) He just looks like he might have bled out of
Scott Benner (39:08) his ass to death. (39:09) And it happens randomly and sometimes it happens and I know it's going to happen. (39:14) And some of those times or if I'm on my feet or talking too much. (39:18) So I have had so nobody knows this. (39:21) Right?
Scott Benner (39:21) I've had this happen to me in a hotel at a Touched by Type one conference. (39:25) This happened to me on the cruise ship last year during the cruise, and it's happened to me a number of other times. (39:34) And so Yikes. (39:36) On the cruise in June, I told my wife, I'm like, I'm gonna get this fixed. (39:41) I don't care what has to happen.
Scott Benner (39:43) Because I was, you know, laying on the floor of a cruise ship with a lot of paper jammed up my hoping I wasn't gonna bleed to death at 02:00 in the morning. (39:53) And then had to go downstairs the following morning at seven and go to poor Suzanne who's running the cruise, who I don't know that way, and explain to her what my night's been like and to to look out for me. (40:05) You know what I mean? (40:06) Like, not a thing you wanna tell somebody. (40:07) Also, there's a 100 people that listen to the podcast are sitting in a room staring at me, and I'm like, now I gotta talk and be, be me.
Scott Benner (40:16) And all I can think is, like, I hope I don't randomly start bleeding because whatever your ex like, whatever people who are just don't know about how this how bad this can be, this isn't like a tiny bit of blood. (40:28) And and for those of you ladies out there are like, well, now you know what it's like to get your period. (40:32) It ain't like that either. (40:33) Okay? (40:34) Like, it's No.
Scott Benner (40:35) Like an open it's like somebody took a knife and just cut an artery in my arm. (40:39) And we're just sitting there watching it bleed waiting for it to to to close-up. (40:42) Right? (40:43) Right. (40:43) So anyway, I come home from the cruise make fun of me if you want.
Scott Benner (40:47) I ask chat GPT about it because all the googling in the world gets you to banding or it gets you to, you know, like, some pretty invasive surgery to do cutting on the inside of, I don't want anybody cutting in that hole. (40:59) You know what I mean? (40:59) Like, like so, like and and all the outcomes are shaky at best. (41:03) Well, I bump into this thing called an HAE, a hemorrhoid arterial embolism. (41:10) Right?
Scott Benner (41:11) And it turns out that those doctors in the hospital who, you know, fish the catheters in and, like, embolize stuff
Domino (41:18) Mhmm.
Scott Benner (41:18) They were looking for ways to make more money with their skill. (41:22) And one of them was like, could we treat hemorrhoids like this? (41:26) And, apparently, they've been doing it like this for about five years. (41:29) Well, my first thought was that same as that lady on the phone call. (41:34) Like, I can't believe this has existed for five years and I didn't know about it.
Scott Benner (41:37) Like, but I know now. (41:39) So then I go and my insurance is the only major insurance company that doesn't cover it.
Domino (41:46) Ugh.
Scott Benner (41:47) And I was like, you have got to be kidding me. (41:49) So I call them back and I'm like, what's it cost? (41:54) Like, tell me what the cash price is. (41:56) Well, the cash price is $10,000.
Domino (41:59) Ouch.
Scott Benner (41:59) So I was like, oh, no. (42:01) I can't do that. (42:01) Like, I'm like, oh, okay. (42:03) But I can't keep bleeding like this. (42:04) Like, I gotta do something.
Scott Benner (42:06) My insurance company says, just wait for the bleeding to start and go to the emergency room. (42:10) We'll cover it then. (42:12) And I was like, why don't you cover it now for a third of the price? (42:16) Right. (42:16) And they were like, it's it's not it's not it's not and so I fought and fought and fought and fought.
Scott Benner (42:21) And I and I and I it wasn't come it you know, nothing was coming of it. (42:25) And so finally, I just contacted the doctor and I said, I'll trade you coming on the podcast for some money. (42:32) You can talk honest about the procedure. (42:35) You can get the word out this way, and, you know, you cut me a a deal on the pricing.
Domino (42:40) And Wow.
Scott Benner (42:41) We we actually and I had the procedure yesterday.
Domino (42:44) Look at you go. (42:44) Yeah.
Scott Benner (42:45) And and he is gonna come on, and you should listen to it because it is not what you think. (42:50) And if you're struggling with this, it's gonna change your life because he'll go over it and the thing, you know, he showed me right after the procedure. (42:58) Have tell you, he they went in through my groin, like, with a calf. (43:00) Right? (43:01) Right.
Scott Benner (43:01) And he found five branches inside of my canal. (43:06) Okay? (43:06) Then where they should have ended, instead of ending, they branched off into, like, a root system. (43:12) And that whole root system is filling with blood
Domino (43:16) Wow.
Scott Benner (43:17) And creating so much pressure internally that not only am I bleeding internally, but it's pushing externally on it as well. (43:26) Like so, like, I've, like, pressure constantly from the inside out. (43:30) Why am I now comfortable talking about this? (43:32) Because it came up by mistake on a podcast a few weeks ago. (43:36) And after I explained it to the person, the person went, I really appreciate you saying that.
Scott Benner (43:39) I bet you it's gonna help people that would never talk about something like this. (43:43) And she's like, that is kind of what you do. (43:45) And I didn't really realize that about myself. (43:47) I didn't know that, like, a lot of this stuff about diabetes that we talk about, most people won't talk about, but I do for some reason. (43:54) And I was like, okay.
Scott Benner (43:54) Fine. (43:55) I'm gonna talk about it. (43:56) Like, after she said that, that's when I reached to the doctor and said, I'd be willing to talk about this on the podcast. (44:01) But, anyway, there's
Domino (44:02) I'd love that.
Scott Benner (44:03) Yeah. (44:03) He's gonna talk all about, like, you know, the procedure, how it works, and also what my body structure is the problem. (44:13) So it's not eating. (44:14) It wasn't exercise. (44:15) It wasn't my he said all the things I tried over the years.
Scott Benner (44:17) He goes, you tried all the right things. (44:19) They were never actually gonna help you. (44:21) And then he explained to me why, and I was like, oh, I want other people to know about that.
Domino (44:26) Absolutely.
Scott Benner (44:26) I'm gonna tell you, Domino, that, like, this is as close as I hope to ever come to knowing what it's like to live as a drug addict because I was incredibly good at hiding this from people. (44:35) And and it's it was really impactful on my life. (44:38) Like, I mean, around my house, from my family, in public, privately, you know, in public professionally. (44:46) I was really, really good at hiding this from people. (44:49) And and it took a lot of mental energy, and it's a lot of, like, physical like, to your point, not dissimilar to you having a an infection that won't go away.
Scott Benner (44:59) My body was always under attack in this one area. (45:03) And I think because it's on your butt, people think it's funny. (45:08) And the truth is if I had swelling in my arm that led to uncontrolled bleeding, nobody would think that was funny. (45:15) You know what I mean?
Domino (45:16) Right. (45:16) So Right. (45:17) Anyway I'm getting choked up. (45:19) Yeah. (45:20) Talking about butt stuff and getting choked up.
Scott Benner (45:22) Butt stuff and choked up. (45:24) That sounds like a different podcast. (45:27) I think that's an S and M podcast, not this.
Domino (45:30) Way after dark.
Scott Benner (45:31) Way after dark. (45:32) Well, yeah, especially when you get up in there, it's very, very dark.
Domino (45:35) I'm getting choked up just because yeah, you carry on and carry it because you've tried things. (45:45) They don't work. (45:46) You felt like this is best it's gonna get. (45:49) Mhmm. (45:50) You don't have a resolution.
Domino (45:51) Yeah. (45:52) You've already put yourself out there and tried to fix it. (45:56) And I I feel that with a lot of I mean, through the last twenty years
Scott Benner (46:01) Yeah.
Domino (46:01) Of it's not pride. (46:03) It's not shame. (46:06) It's like, well, it's not gonna make it better
Scott Benner (46:08) Yeah.
Domino (46:08) To talk about it.
Scott Benner (46:09) So why
Domino (46:09) I don't wanna marinate it, and I don't want advice. (46:13) Yeah. (46:13) And I to manage other people's feelings.
Scott Benner (46:16) Well, I have a a unique platform where I can tell you what happened to me, and you can go decide for yourself, and that's really all I'm trying to do. (46:22) But I I can tell you that in recovery, which by the way, I wasn't even all the way out. (46:26) It's like a light sedation. (46:27) It's just like a little high. (46:28) I felt like fuzzy behind my eyes while they were doing it.
Scott Benner (46:30) You know? (46:31) And, yeah, I was in recovery for like an hour and then I was gone. (46:35) And, he came out and he said to me, he was like, you know, how you feeling? (46:38) And I said, I feel like it's too early to say this, but there's a lot and I can't believe I'm using these words, but there's a lot less pressure on my anus than there usually is. (46:47) Yeah.
Scott Benner (46:47) And I was like, if if even just this is what like, if if that happens and I don't believe anymore, and I and I was getting dressed, like, as he came over and talked to me, I said, may I? (46:57) And he said, sure. (46:58) And I just reached around. (46:59) I hugged him. (47:00) I was like, man, thank you so much.
Scott Benner (47:02) You know?
Domino (47:02) Absolutely.
Scott Benner (47:03) Yeah. (47:03) And by the way, for those of you who are listening, the best part of this procedure is it doesn't involve a speculum, and that's not fun is what I'm saying. (47:13) And just just cast me. (47:14) You just went in through my groin.
Domino (47:15) So recovery time and healing and all that, what does that look like? (47:19) I'm done. (47:19) Without giving too much No.
Scott Benner (47:20) I'm done. (47:21) It's over. (47:21) Yeah. (47:22) Yeah. (47:22) Like, he he he emailed me this morning, asked how I was.
Scott Benner (47:25) I, told him, and he's like, great. (47:28) Just continue to rest today. (47:29) I said, I'm gonna record a podcast. (47:31) I think that's restful enough. (47:32) I was like, but otherwise, I'm gonna sit around and just do that.
Scott Benner (47:34) I came home yesterday. (47:36) I slept for five hours in the afternoon. (47:38) I got up, ate some food, went back to sleep. (47:40) Got up this morning at eight. (47:42) I haven't used the bathroom yet, but I had restricted my food for a couple days before the procedure.
Scott Benner (47:48) Yeah. (47:49) So I didn't expect any to use the bathroom today, which by the way is its own form. (47:53) And I don't wanna I don't wanna sound like a like a fragile girl on TikTok or a fragile I shouldn't have said girl. (47:59) I'm old. (47:59) Sorry, everybody.
Scott Benner (48:00) I have, a fragile person on TikTok, but, like, it is a form of an eating disorder. (48:03) Like, you should see how I manipulate my food so that I don't have to go to the bathroom in certain situations.
Domino (48:09) Right.
Scott Benner (48:10) It's a lot to think about. (48:12) And and, again, I I I hope everybody understands. (48:15) I'm not talking about, like, oh, there's a little blood on the paper. (48:17) I'm talking about, like, hey. (48:18) You think he's gonna die?
Scott Benner (48:19) Looks like he's gonna die. (48:20) It's not great. (48:21) The last time I said the last time it happened to me was on the cruise, but that's actually not even true. (48:26) The last time that it happened to me was the night before Friends for Life.
Domino (48:31) Wow.
Scott Benner (48:31) So I got up in the morning. (48:33) I thought I had it under control. (48:35) It happened again in the airport. (48:39) And then I had to get on the plane, and I and that was the last time it was a problem during that week. (48:45) But during the Friends for Life week, if you guys saw me at Friends for Life, I didn't eat enough food for a human being for five days.
Scott Benner (48:51) Like, I was trying to give it time to heal before I had to use the bathroom again. (48:57) It's crazy. (48:58) Like, it's just a terrible way to live. (48:59) And it and I think it's overshadowed by the fact that it's like hemorrhoid funny, but funny. (49:04) It's not funny.
Scott Benner (49:05) It's it's, you know, as close as I'm gonna come to an arterial bleed in my life, and it was happening a little little too consistently. (49:12) Anyway.
Domino (49:13) Since you're going to do a follow-up podcast on that, I'd be interested to see, especially since you're just so brand new out of the procedure, if you pay attention to how much mental gymnastics and mind space working around that pre surgery took.
Scott Benner (49:33) Oh, I can't wait to have that that time to really consider that because No. (49:37) Just I think it's
Domino (49:38) you're eating.
Scott Benner (49:39) Yeah. (49:39) I think it's a lot.
Domino (49:40) You have to be strategic.
Scott Benner (49:41) Yep. (49:41) No. (49:42) I think it's a lot, and I think it's gonna go away, and I'm pretty excited about it. (49:46) Plus, I told him, the doctor, I said, I don't want to do this right away. (49:50) Like, let me live with this for, you know, some weeks so that I can really contextualize what it's done for me.
Scott Benner (49:56) So Great. (49:56) Yeah. (49:57) So he's gonna
Domino (49:57) so happy for you.
Scott Benner (49:58) Thank you so much. (49:59) I didn't mean to end on that. (50:01) We're still calling this bear attack, and I really appreciate you doing this, Domino. (50:05) And I and I appreciate all your support online and and you taking the time to share your story today. (50:10) It was really lovely.
Domino (50:11) Well, thank you. (50:11) I really believe it. (50:12) You're in in the whole juice box thing. (50:15) You're doing a great thing, and, literally, it's saved my life. (50:19) So I'm grateful.
Scott Benner (50:20) Thank you so much. (50:21) Oh, you made my day. (50:22) Thank you. (50:22) Hold on one second.
Domino (50:23) Uh-huh.
Scott Benner (50:30) A huge thank you to Cozy Earth, a longtime sponsor. (50:35) Cozyearth.com. (50:36) Use the offer code juice box at checkout. (50:40) You will save 20% off of your entire order when you use that code. (50:44) Don't let me down, kids.
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Domino (51:37) Terms and conditions apply. (51:39) Full terms and conditions can be
Scott Benner (51:40) found at omnipod.com/juicebox. (51:44) Thank you so much for listening. (51:46) I'll be back very soon with another episode of the juice box podcast. (51:49) If you're not already subscribed or following the podcast in your favorite audio app, like Spotify or Apple podcasts, please do that now. (51:57) Seriously, just to hit follow or subscribe will really help the show.
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Scott Benner (52:15) You know what else you might enjoy? (52:17) The private Facebook group for the Juice Box podcast. (52:20) I know you're thinking, ugh, Facebook, Scott, please. (52:23) But, no, Beautiful group, wonderful people, a fantastic community. (52:28) Juicebox Podcast, type one diabetes on Facebook.
Scott Benner (52:30) Of course, if you have type two, are you touched by diabetes in any way, you're absolutely welcome. (52:36) It's a private group, so you'll have to answer a couple of questions before you come in. (52:39) We'll make sure you're not a bot or an evil doer, then you're on your way. (52:43) You'll be part of the family. (52:45) If you're living with type one diabetes, the After Dark collection from the Juice Box podcast is the only place to hear the stories that no one else talks about, from drugs to depression, self harm, trauma, addiction, and so much more.
Scott Benner (53:02) Go to juiceboxpodcast.com up in the menu and click on After Dark. (53:07) There, you'll see a full list of all of the After Dark episodes. (53:11) Hey. (53:11) What's up, everybody? (53:12) If you've noticed that the podcast sounds better and you're thinking, like, how does that happen?
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