#1905 An Ounce of Prevention
An Ounce of Prevention
Brianna, 11, is a competitive trampoline athlete headed to nationals — and type 1 makes her blood sugar crash mid-routine. She and her dad Jesse talk exercise lows, community, and staying ahead of it.
Jump to a moment
- Exercise — especially a trampoline — can send blood sugar crashing, and it’s one of the things people with type 1 fear most. Brianna can drop hard mid-routine, sometimes going low up to ten times in a single three-to-four-hour practice. Her family plans around it with early activity mode, reduced or half boluses at gymnastics meals, and Gatorade and juice always in the bag.
- Timing the meal before practice matters. Brianna eats earlier on gymnastics nights so the insulin has time to clear before she’s bouncing — a deliberate strategy to avoid stacking active insulin on top of exercise.
- Staying ahead of a low beats chasing it. A recurring theme: treating a low after it hits means an hour of shaking through practice or a lower competition score. Catching an 85 heading down — an “ounce of prevention” — is the small change that could make the biggest difference. Brianna’s own top goals: pre-bolus, win nationals, and get her A1C toward the fives (last was around 6.1).
- Community changed everything. Getting connected right after diagnosis — a meetup, older youth ambassadors, Breakthrough T1D events — turned isolation into belonging. Brianna went from feeling alone at school to organizing a picnic for the whole youth-ambassador group.
- Perspective helps on the frustrating days. Gear isn’t perfect — pods can leak during high-impact activity, algorithms can’t fix a missed bolus — but as Scott notes, people managed type 1 for decades with none of it. Frustration is real; so is how far the tools have come.
- Breakthrough T1D (formerly JDRF) — the youth-ambassador program, walks, and meetups Brianna is part of (verify URL)
- JBP #1350 — Jesse’s episode — Brianna’s dad’s earlier conversation about the newly-diagnosed years (verify slug)
- Omnipod 5 — the tubeless pump Brianna wears; sponsor link
- Small Sips Series — short, one-idea-at-a-time management episodes (verify slug)
- Juice Cruise — the Juicebox community cruise (2027 out of Port Canaveral)
- Juicebox Podcast Facebook Group — community around type 1 (verify URL)
Every word of the conversation
Meet Brianna and Jesse0:00
Welcome back, friends. You are listening to the Juice Box podcast. Nothing you hear on the Juice Box podcast should be considered advice, medical or otherwise. Always consult a physician before making any changes to your health care plan. If you're looking for community around type one diabetes, check out the Juice Box Podcast private Facebook group, Juice Box Podcast, type one diabetes.
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Hi. My name is Brianna.
Brianna, how Oh, oh, that'll get me. Sorry. Do it again.
Hi. My name is Brianna.
And I'm Jessie. I'm her dad.
Alright. Brianna, how old are you?
I'm 11 years old.
11. You have type one diabetes?
Yes.
How did you end up on this podcast? What happened?
So I wanted to be on the podcast because my dad was on the podcast in episode 1,350. And I sent an email saying, like, I'm I'm a gymnast who wants to be on the podcast, and here we are.
Cool. Blake, what do you remember about doing it? How long ago was that?
Honestly, I forgot. I think it was, like, a couple months ago.
A couple months ago, you sent me the email.
Yeah.
Okay. And, Blake, you were on the podcast, was it years ago?
I was last year or just over last year.
Hey, Jesse. I'm sorry. I'm calling you by your last name. I apologize.
It's okay. No. Yeah. It was, last year, or just past last year, maybe a year and a half. And I got on because I wanted to kinda talk about some of the mental health stuff with the, you know, with the newly diagnosed kid.
Yeah. How are how have you been since then?
Great.
Things are better?
Yep. And Brianna is thriving.
That's awesome. What do you think made it better for you?
Time. I think as you go on, you know, with this diagnosis, things become more manageable, put things in perspective and you just see you know, I could just see how Brianna has, you know, grown and managed it and things just gradually keep getting better and better.
Your anxiety about it goes away or you build more experience and it feels more knowable? Any of that sound true?
Yeah. I I think, for me, the unknown, so the beginning, the anxiety as far as, like, the unknown and some of the challenging aspects of it, learning how to manage it is tough. But as you do gain experience, I think it is much it's never easy, but it's definitely more manageable and you learn and you kind of understand it a little bit better.
Diagnosed at Eight5:07
Okay. Brianna, how old were you when you were diagnosed?
I was eight.
Eight. And that's what, like three years ago maybe?
Yeah.
K. Can you tell me what you remember about the time leading up to the diagnosis?
So we went to Disney in the end of two thousand twenty two. In December, my parents said that they noticed I was, like, off. And when I looked back at pictures, I was, like, really pale, really skinny, and I was, like, kinda miserable the whole time. I always complained I was, like, really hot because it was really hot. But I came back, and then I was, like, always super tired.
And then in January, I was, like, going into school, and I was chugging water bottles. And I was going to refill them, and I was still, like, super thirsty. Like, I haven't had any water all day. Mhmm. And I was chugging water bottles.
I
have to tell you, when I took my kids to Disney, I was complaining that it was hot all the time too, but I did not end up having diabetes. Also, what are those bugs? Do you know what I mean? Like, they're do you you ever ride the did you ride the bus, like, from the resort to the Yeah. The park and there were these giant bugs just smushed on it?
It's very, very unsettling. I didn't I didn't enjoy it all. So so this was like a Christmas time trip for you?
Yeah. I see. Was I think it was over my birthday, which is in December beginning of December.
Okay. So So you get home. The the drinking continues. Do you tell your parents about it, or how did or do they see it on their own?
They saw it because I didn't really notice it until I looked back. And I was just noticing, like, there was this one day. I don't know why I remember it, but I do. But I had my water bottle, and I was chugging. I had to keep it on my seat.
I went to refill my water bottle at least five times that day. And in first grade, I had to start, like we were only allowed, like, three bathroom visits a day, and I was, like, using all three every day. And I would still needing to go. So sometimes I would have to go four to five times a day, which was a lot.
Your school limits your peeing?
Not really, but, like, they she said there's only well, my teacher was really annoying. But, anyway, she said, like, only three bathroom visits a day unless it's an absolute emergency.
So
Sounds like some kids were taking advantage of the bathroom.
Yeah. One kid was spending thirty minutes in the bathroom at a time talking to his friends. He wasn't even in the bathroom. Oh. That ruined it for the class.
They ruined yeah. That nobody can pee. Ridiculous.
Mhmm.
So okay. So it's getting worse and worse and worse. Just you, do you look at her and think she looks different, or is it really just the drinking that throws you off?
No. We we didn't notice that. I think the drinking and the peeing were the two main factors for us.
Okay. So this makes you go to the doctor?
The Smoothie and the Wrong Appointment8:00
Yes. Eventually.
Yeah. Eventually. And do you have any recollection, Brown,
I'm
I'm really interested. Do you have any recollection of going into the doctor, what you thought was happening and what you knew was happening when you left?
I had no idea what was happening. I just I remember I was mad that it had to go. So I got picked up from school early that day, and then we went to the doctor's office. I said asked my dad if I could get a smoothie. He said yes, but then he knew what was he had a feeling, what was gonna happen, and we never got that smoothie.
He said maybe after because we're running a bit late. When we showed up, they said our appointment was actually for the following week, but they said they could fit us in that day. And they checked my blood sugar. It was 401, and they sent us straight to the ER. And that is all I remember.
It's a good thing you guys got the date wrong on the on the appointment. Or or did you, Jesse? Or were you just like, we'll just show up and pretend we didn't know?
Yeah. That's it's a funny story because I I don't I vaguely remember that, but I I remember my wife kind of like, she she knew. And Mhmm. Even even me, I was denying it because I was like, yeah. We'll get a smoothie because you gotta go to the doctor.
I'll I'll treat you to a smoothie. Mhmm. Even I had, like Some
smoothie king.
Yeah. And I had an idea, but, like, even that, like, denial of, yeah, we could just get a smoothie. And and thank goodness we were running late because then she would have been, like, through the roof. But
Well, in fairness, Jesse, you were a week early. Yeah. Yeah. You were a week early.
So we were just we were just going. We were, you know, have get a smoothie, and we'll eventually make it to the doctor.
Brianna, you know your dad feels bad when he says yes to a $9 smoothie. You know what I mean? Yeah. Mhmm.
And those smoothies were, like, so much sugar. They were, like, 50 carb
I know I
know. Smoothie King.
Arden gets them sometimes, and then we ask for half sugar, and they're still really sweet.
Yeah.
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Three Days in the Hospital12:08
I they didn't tell me anything, but they I think they told my dad something.
Okay. Yeah. The they they essentially said, we think it's type one diabetes, but in order to conf here's the amazing part is the doctor's office that we went to, which is not the regular office we go to. It was like a a satellite location. They didn't have a finger stick.
So they sent us to another office and, we end up going and it was on the way to the hospital, but we ended up stopping there. They did the finger stick and they're like, yep. You gotta continue on your way to the hospital.
It's like it's like a it's like a a board game.
Yeah. Yeah. Lot of moving parts. Yeah. Yeah.
And and we were early.
Pick Bran up at the school. Go to the doctor's office. The doctor's office doesn't have a meter. Go to the other doctor's office. Mhmm.
Go to the hospital.
That doctor's office seems mortified. Run to hospital. So how long were you in the hospital, Brown? What do you remember about the stay?
I was in there for three days. I had no idea what was happening. I was crying in the car. I was super upset because I had no idea what just happened. I didn't know if I was gonna be okay.
Was I dying? Nobody would tell me what was happening. We got into the ER. We got, like, seen right away. The ER was packed, but we got seen right away.
And, like, before I knew it, I had an IV. I was in a bed, and they were, like, talking to me about, like, a medical ID bracelet, which I had no idea what was even happening. Why are they, like like, giving me medical ID
bracelet? That's the first thing someone said to you? You're gonna need a medical ID bracelet.
There it's yes. She just had, like, a bunch, and I chose the pink one. And they gave me a blanket, and then they sent me to the ICU.
Oh, I see. They they laid some gifts on you to try to make you feel better. Yeah. Right? Jesse, does it surprise you to hear that she felt like nobody was telling her what was going on?
Yeah. And to be honest, like, I I know for for me, like, it was shock. Complete and even kind of going into the doctor's appointment, having the idea of, well, here's all the symptoms. This is what it looks like. This is probably what it is.
Still just denying that and not really facing reality. Like, how could this be? And this are they right? And could it be something else?
And Yeah.
All these other things that, even for me, like I like I said, it was just shock and not.
Brianna, is it hard to hear that your dad was struggling, or or do you understand that already?
I understand that he was struggling, but it is hard to hear because he was just, like, trying to get me to the hospital. Didn't really know, like, too much about what was happening. We both were, like, surprised.
Mhmm. And what does this teach you about having children?
Don't be surprised.
Yeah. Don't be in a hurry. You know what I mean? It's a it's a lot of work. So we're
Don't say yes to smoothies right before the doctor's office when you knew something is wrong.
That's all you've taught her is that one day she will not stop anywhere for a child while she's taking it to a doctor's appointment.
That's good advice.
Yeah. It's not she we'll do it after. It'll be fine.
Yeah. After is fine.
Yeah. You'll you'll enjoy the lollipop way more. Don't worry about it. Yeah. Yeah.
Do they still do lollipops at the doctor's office?
Not really. No.
My bank has them.
Live at random places.
Yeah. Like, you know, the little dumb dumb ones? Why do they call them dumb? By the way, why alright. Well, that's not really for our conversation, but the little round ones, I I actually have to go pick up a check to pay a bill later.
I'm gonna I'm gonna get a root beer on there, I think.
The root beer is the best flavor.
I you and I agree on this. Absolutely. Yeah. By the time you leave that hospital, have people come to visit? Do you feel any better?
Is it still just scary? What what what happened during that time that worked for you or didn't work for you?
It was all scary. I, like, was not happy that I had to get shots because I was thinking, like, it's a shot every time I have to eat. So then I would, like, just be upset because I didn't wanna, like, have a shot all the time because it was really annoying. My she used to be my babysitter, and she came she came and visit me in the hospital. And she's, like, the best, and she visits us even though she doesn't babysit us anymore because she's more like a family than just a babysitter.
Finding Community16:35
That's sweet. Do you know anybody else who has type one diabetes?
Yes. Who? A lot of people. So nobody in my school, but I have, like, a lot of friends through, like, the youth ambassadors and through Breakthrough. Oh, yeah.
A lot of friends.
Oh, you're doing stuff with Breakthrough?
Yeah.
Oh, that's nice. How long have you been at that?
A couple years.
What what are some things you've done so far?
So, I'm a youth ambassador as of this year and last year. We went to, like, the turtle back soon meetup just when we got diagnosed because we got really lucky just when we got diagnosed. Like, the meetup was right after that. And then we went we do the walks every year. I don't think parents run the support group.
That's very nice. Brianna, I don't think anyone's ever described I was very lucky about when I was diagnosed with type one diabetes because I guys go to the zoo. Kinda nice.
What Yeah.
I'm wondering, Jesse, did is this a thing you and your wife decided to do and then she started being involved? Do you feel like it's a thing you introduced her to, drug her into, or that she was interested in?
So I think the driving factor I mean, well, like Brianna said, we we did get lucky timing wise, like, right after we come home. We've we learn about, you know, obviously, in the hospital, they give you all the resources. We were at Jersey Shore, and Jersey Shore was amazing. Her doctor her doctor is amazing. But, like, at that time, they gave us all the resources.
Hey. You could go to this. You could go to that. So we ultimately did go to the meetup. She met like, we're still friends with the people that we met that day, but it was a it had a huge impact that day, like, in how she connected with a current youth like a youth there was I think she was a she was eight, and the youth ambassador at the time was, like, 16, 17, 18, someplace in there.
She was just going to college, and she was so helpful to Brianna. And then there was other girls there who had different pumps and whatnot, and they were talking about it the whole time. So that was, like, a huge connection. And then after that, she goes back to school, and she doesn't have anybody in her school who has type one. So it was kinda like a phase of, like, you know Yeah.
Being alone.
Yeah. You felt surrounded then alone. And did that did that make you want to be? Are you
So then
Oh, I'm sorry.
Yeah. I that's a good one to be or not. So it was kinda like, well, she needs some connection. Like, who can we connect her with? And, like, we were trying as parents to do things to kind of connect her to people with type one so she didn't feel alone.
Mhmm.
And then, and then she kinda took it from there, I think.
Do you feel that way, Brianna? Do you feel like it was your decision to do this stuff?
I feel like you guys kinda, like, pushed it and, like, had me do it, but then I, like, liked it, so we kept doing it.
So instead of pushed it, we'll say they introduced you to it, and you weren't sure at first, but then you really liked it.
Yeah.
That's true. We should clip this part out and send it to my kids. You've probably heard me talk about US Med and how simple it is to reorder with US Med using their email system. But did you know that if you don't see the email and you're set up for this, you have to set it up. They don't just randomly call you.
But I'm set up to be called if I don't respond to the email because I don't trust myself, a 100%. So one time, I didn't respond to the email, and the phone rings at the house. And it's like, ring. You know how it works. And I picked it up.
Was like, hello? And it was just the recording. It was like, US med. Doesn't actually sound like that, but you know what I'm saying. It said, hey.
You're, I don't remember exactly what it says, but it's basically like, hey. Your order's ready. You want us to send it? Push this button if you want us to send it. Or if you'd like to wait, I think it it lets you put it off, like, a couple of weeks or push this button for that.
That's pretty much it. I push the button to send it, and a few days later, box right at my door. That's it. Usmed.com/juicebox or call (888) 721-1514. Get your free benefits checked now and get started with US Med.
Dexcom, Omnipod, Tandem, Freestyle, they've got all your favorites. Even that new islet pump. Check them out now at usmed.com/juicebox or by calling (888) 721-1514. There are links in the show notes of your podcast player and links at juiceboxpodcast.com to US Med and to all of the sponsors. You know what I mean?
Maybe once in a while, we know something. Who knows? Crazy, Jess. You're right. Like, every once in a while, might have a good idea.
It's hard to believe.
The Picnic She Organized21:28
Breanne Brianna's the type that she just does, though. She, like, you know, she gets something in her mind and wants to do it, and she just does it. So Okay. And I in in my eyes, she did it. But a good example is, like, last year as a youth pastor, part of her requirements of doing things, like, she's like, I wanna have a picnic for everybody.
And she was like, you know, she came up with the idea and she was like, let's do it. And she put together a picnic for all the youth ambassadors, and that would you know, it's all her. She's gets this idea, and she does it.
Brianna, how do you facilitate that? Like, once you have the idea, how do you put it into motion to make it happen?
So I introduced the idea to them. They said it was a great idea, and then I started to make it happen. I just made, like, the RCP. I decided where we would do it. We did it in Liberty State Park, and it was very fun.
Now do you need to get, like, a like, can you just show up at Liberty State Park with a 100 people? Do you need to get a permit? Like, I'm trying to figure out, like, who does all that back end stuff? Or do you just look at your mom and go, it would be nice if there was a picnic at Liberty State Park. Let's get it.
Let's make it happen.
Yeah. Dad, looked into it, and he figured out, like, how we do it. There's, like, little rent out spots that we rented out, like, a little section. There was, like, six picnic tables, I think.
Yeah. And It sounds like you're your dad's project manager.
Yeah. She had she has she came up with the idea and then, you know, the permit part. I was like, okay. I'll take care of the permit. But she put together the whole RSVP.
She sent out to the group, and, you know, she had people come with and while we were there, I guess she did she did a couple of different games that we didn't even know. Like, she she had it all planned, like, as far as I just, you know, did the legwork as far as the little stuff,
but Very nice.
Made the actual day happen.
Brianna, do you think those that group of kids, are they would you describe yourselves as friends or just people who do a similar thing and get together once in a while?
I'm friends with, like, some of them. Some of them, I don't they didn't really talk, but, like, I'm friends with, like, some of them still. And, like, there's a youth ambassador group chat that I'm in, and we talk. And I made a lot of friends through that.
Well, that's a great idea. Do do would you I I this is I don't mean for this to be negative, and I really I'm just trying to understand, like, the bigger picture. Do you think there are kids who are doing it who are just like, I don't wanna be doing this, or do you think well, this that was a quick yes. Okay. What what gives you that idea besides they probably told you that I don't wanna be doing this?
They just don't do anything. They just, like, sit there and are like, I don't wanna be here kinda thing. Like, at the summit, there was, like, some youth ambassadors that clearly did not wanna be there, You could tell their parents wanted them to be there and kinda force them.
Mhmm. Do you think have you ever seen one of those kids come around, or do they generally go in the same direction that they start?
They go in the same direction.
Okay. What do you think what do you think you're getting out of the experience that is not intersecting with those people?
I think I'm getting out of it a lot of good because I'm meeting a lot of friends, and those people, they just stand there. They don't affect me. So
No. No. No. I don't mean that they're doing anything wrong. I mean, like, why like, well, how do I mean this?
If I if I brought a birthday cake to 10 people and five of them love cake and five of them don't, then there's something that the five who are enjoying it are getting that the other five don't. Right? So about that experience about being a youth ambassador, like, what is it that you love about it, and do you have any thoughts about why they don't feel the same way?
I think I love it because it's probably more of my, like, interest, and I like helping people. And not everyone likes to be, like, helping people that, like, need help and, like, meeting new people because I understand that some people are shy.
Okay. So you think sometimes it's just some people are shy or they're not the same in social situations, that kind of thing. And you're more outgoing?
Yeah.
Onto the Trampoline25:51
Okay. What else do you do with your time? I I mean, you go to school obviously, but do you have activities that you do?
I'm a trampolingianist.
Oh, like, Charlotte.
Yeah.
Oh, do you know her?
Yeah.
Oh, wow. Tell me a little bit about that. How does that get started?
I I wouldn't say you know her. You
know. Well, she knows of her. Yeah. Yeah.
I know of her. Yeah.
Well, she might hear this and then you might know her. Who knows about that? But tell me about, how that gets started. How do you start doing that specific activity?
So at, like, two or three, I think, or three or four, I started artistic gymnastics and did that for a couple years as, like, a little kid. I loved doing everything myself. Like, every time I was doing, like, pullovers on the bar, my coach would be try to help me, but I was like, no. And then that place got shut down, and it was COVID. I kept doing, like, cartwheels and handstands around the house.
And for when after COVID happened, my parents were looking into gyms, and we found one that's, like, five minutes around the corner. And I absolutely love it, and it happened to be a trampoline gymnastics gym. Everyone there is very nice, and I love it there because I'm on the team now, and I'm going to nationals next week.
Oh, congratulations. That's really awesome. So you've been doing it for a number of years?
Yeah.
For longer than you've had diabetes?
I've been doing I would say I've been doing trampoline for four years, and I've been diagnosed for three because I remember I did a year without having diabetes. But Okay. Yeah.
So do you know that a lot of people who have type one will say that the thing that they're most scared of is a trampoline?
Yeah.
Yeah. Do you know why that is, and how have you figured it out?
So last week, I was at practice. I was just doing my routines, getting ready for nationals, and kept flying off the trampoline. I was low that whole practice. I ended up leaving early because I ended up doing my routine on tumbling to my stomach, which hurt. And, yeah, I can tell.
And, also, they make your blood sugar drop like crazy.
Yeah. So how do you handle that?
That's a good question. I don't really know because I just we always do activity mode. I have an Omnipod five. And then we have a bunch of Gatorades and juice in my backpack in case I need it.
Often how often do you need it? Like, how long's I guess, how long does a practice take?
Okay. So this fall practice
is Wait a second. Your dad just laughed like, my whole life.
Well, the fall practices were three and a half hours to four, and then the summer are three to four hours.
Wow. Are you moving the entire time, or is it because
there's fifteen minute break for, four hour prac four hour practices.
But my point is is, like, how many people are in the group? Like, how many people are on the team?
So there's, like, 30 people on the team. We have three events. Not everyone ever comes, so there's not been a single day unless it was, like, a mandatory practice before our competition that everyone has been there. Mhmm. And so there's, like, 25 people.
And And do those 25 people, are they active all at the same time, or are they taking turns?
We take turns, but, like, when you're not taking your turn, you're either doing drills, pushing the mat for people on trampoline, or, like, gutting water.
Okay. So you're always moving?
Pretty much.
Okay.
Sometimes you get a break.
How often do you get low during a practice that's three or four hours long?
So I think the thing that makes it, like, even out is because when I get, like, stressed about doing a new skill or my routine or something or presenting anything, I get a little nervous, which makes my blood sugar go up. So that probably prevents a lot of lows. And then I think if I, like, am just doing a regular practice, I can get low up to, like it can be from zero to, like, 10 times. I'm not even joking. I get low a lot.
Do you have to eat before you go to practice, or do you try not to do that?
So it always works out that I eat before practice because practices are like the fall ones were 05:30 to nine and, like, ten to two in the morning. Well, yeah, in Saturday. So I would have my breakfast before I leave, and I would or I would have dinner before I leave, and I always have a snack before I leave.
Managing Lows in Practice30:30
So I'm sorry. 05:30 in the morning?
05:30 at night.
Oh god. Yeah. I was like,
jeez. So, like, gymnastics is crazy because it's literally twelve hours a week. And, like like, I would love to say, like, we strategically eat at such a certain time and, you know, manage the, like, a low carb thing so you don't put a lot of insulin on board.
Like Right.
That would be a perfect world.
We're just not dose a lot.
It's just it's impossible. So, like Yeah. Because she comes home from school and then she goes straight to gymnastics, like, it's she has to eat. And then depending on what she eats, like, we'll dose we'll do, like, a half dose. We'll you know, so she'll run high, and then she'll come crashing down as soon as she gets on a trampoline.
And what's interesting is, like, during gymnastics, like, she could be tumbling for an hour straight or on the double mini, which is, like, kinda like a vault for two hours, and she won't really come down. She can be stubbornly high.
But then
as soon as she gets on the trampoline, she'll she'll crash.
That happens.
And then sometimes, you don't know. If it's raining, that means, like, we should dose a little bit extra because that means we're not gonna run outside in the beginning unless we have Rob, but he because he makes us run.
Rob makes you run-in the rain?
Yeah.
Wow. What a jerk. How come he doesn't care if you're running in the rain? Does he like it maybe? Does he run with you?
He's just he just does that, I guess.
No. No. No. Wait. Does he run with you?
No. Does he stand outside with an umbrella and look at you? No. Does he does he stand inside and wait for you to come back?
No.
What well, how where's Rob doing
the run? As long as it's not thundering. He stands under a tree.
Rob, come on. Make the
kids stand.
It makes the your kids get wet. He doesn't get wet with you? Ridiculous. Yeah. Okay.
Well, we'll we'll we'll see what we can do about that. I bet you Rob never thought he'd be on a podcast standing under a tree. He'll rethink it after he hears this.
Sometimes, if we get lucky, if it's pouring, he'll sometimes let us go inside.
Uh-huh.
How generous. Just run inside.
How generous. So so, Jesse, what you're telling me is is that despite knowing what to do and having a lot of good intentions, life gets in the way and you don't always do what you need to do?
So, I mean, we're we're we are conscious of it and, like, we definitely know, like, alright. Tonight's a gymnastics night. Let's put you in activity mode early. Let's, you know, not load up on the carbs. Let's not crush you with insulin.
You know? Like, so, you know, we are purposeful, you know, and knowing she's gonna eat this meal. We're only dosing half. She's gonna go high, but she is gonna come back down. So it's like so we try to set it up so that she is a little high or she doesn't have a lot of insulin on board so that we can manage the low
We're having dinner really early because if I have dinner early, the insulin has time to, like,
get
out of my system.
So you're making a lot of, like, purposeful steps, but it's just not that easy. And then the trampoline is the x factor.
Yep. Yep. And then, like so what Brianna was talking about last week, she she just was she was literally low for an hour. She was between, I don't know, 65 and, like Two hours. 65 and, like, 72 kinda thing or 50.
How does that 50.
Brianna, how does that feel?
I felt low, and I was just shaky the whole time. And, of course, we had trampoline first that day. Of course. And it was only two people on my trampoline. So it was just me and them switching and switching the whole time, and that person took very short turns.
Yeah. So it's the actually and it was, like, the perfect storm because she had more insulin on board than we than we would like. The person she was sharing a trampoline with was actually injured and she was just kinda like bouncing. So she wasn't really
Oh, yeah.
Doing like a full workout. So Brianna had the trampoline for most of the time. So it was just, you know, like, the fact that she was only as low as, like, 65, 60, whatever it was, like, it it's actually kind of crazy because she should have been way lower.
Yeah. Yeah.
And and, Brenna, when that's happening, does your dad know I'm I'm I'm assuming your dad's the one who sits with you and watches most of the time?
Yeah. Okay. So if if I'm good, like, if I'm, like, if I'm, like, one eighty, I don't have a bunch of insulin on board. If I'm, like, maybe one and then I'm a little bit a lot of insulin on board. They stay in the area because it's really close, so they just stay home.
And if they see me dropping, they'll come and see if I need anything, or they'll sit in the parking lot and stuff.
Okay. And do you ever like, when you're feeling like that, tell me why you don't just stop and say
because I don't sometimes I feel like that when I'm high. Sometimes I feel that because I'm nervous about a routine. It's I can't tell if it's low or not, and sometimes it's not low. And it's just really
So you don't wanna go to your phone to check?
I don't know, actually.
I think I'm not saying it's a bad thing. I'm just trying to understand, like, what happens.
So it would be good if I had my watch on, but, like, I typically don't have my watch on when I'm tumbling because I have these things called tiger paws, which go on your wrist and help you tumble. So I can't really wear my watch with them, so I take it off. But sometimes I just take it off before practice because it's just easier
Yeah.
So
I don't forget. And then when I'm putting my Tiger Paws on, I have my watch on, have to go take it off, put it back in the break room, and get it back out.
The break room. So is is your phone not out near you while you're jumping?
It's close. Yeah. It's in the the break room's just like the cubby room that it's like a little room attached to it. It's where we put our bags and stuff. And the gym's not that big, so no matter where I am, it pretty much will always connect.
Okay. So you're so you're Dexcom connected, but it doesn't necessarily mean Dexcom. Right, Libre? What are you
using? Dexcom.
So it's connected, but you but you don't necessarily hear the phone. So now you're just left with how you feel. When you don't feel right, you don't go check on yourself.
Sometimes if I really don't feel right, I'll go and I'll ask for water, and then I'll go. All the coaches know. So just, like, know it.
I'll go. And and and would they be upset if you went and took care of something?
I just ask them first because you have to ask.
But Let me
Unless you're on trampoline with like, certain coaches, then sometimes you don't have to ask for, like, water.
Bre Brown, let me ask your dad the question. Okay? Is she being judged, Jesse? Is there a fear that she's gonna not be treated seriously or something like that?
No. Her her coach so, this is, like, the parents' challenge. Like, I don't we talked to the coaches, and we were kinda like, we don't want to put the phone with you, and they don't kinda, like, make you responsible because they're busy making sure girls don't hurt themselves. So, I mean, they're they're constantly doing stuff. So they they really can't pay attention to it at all to a degree.
At competitions, though, they hold my phone sometimes. And, like, during regional's warm up, because that place was huge, they, like, had me hold my phone. And then when I was taking my turn, they took it for me and just held it while they were holding
the mats. Okay.
And they and they're good. Like, pretty much, like, anytime I walk into the gym, they literally look right at me, and it's kinda like, do you need her? Is she low? Yeah. You know, they're kinda, like, looking to understand.
Over. You know, like, we we know why you're here. You're here because she's low again. Okay. And they call they say, Brianna, and Brianna comes running over.
So it's kinda like just a I mean, it's more of an understanding. Like, they they really don't know anything about it and, you know, the intricacies and how it works and whatever. They just know
about that. Stuff.
Yeah. They just know if she's low and I walk in or mom walks in, like, chances are we need her, and they just send her over to us and stuff. So
When Lows Cost the Podium39:02
Okay. So, Brianna, let me ask you this. Is trampoline and gymnastics not better for you personally when your blood sugar's more stable or not low?
It like, at States, I probably could have won if I got second place if I wasn't low because I was low and I was, like, had a whole Gatorade, like, a huge like, the big one, which are, like, 35 carbs. I had a whole one of those. I probably could have won if I wasn't, like, shaking the whole time because I was low. Okay. At regionals, I was shaking the whole time because I was just nervous.
But if I notice if I'm low or if I'm high, I don't perform as well as if I am, like, in range.
Mhmm. Now I'm keeping in mind that you're 11. Okay? So Yeah. I'm not being hard on you here.
Okay? But if that's the situation, has it occurred to you to just check sooner and make sure that you're gonna be okay? Like, be ahead of it somehow instead of, like because I feel like what's happening is that you're getting low and then addressing it. Is there not a way to address it so you don't get low? So there's still two things happening, except they happen in a different order.
So sometimes I'm on other events. Like, my events are stacked, and they typically have us waiting on the floor for a little while or, like, in the chairs before they bring us out. And I don't have, like, my phones all the way in my bag or my parents have it. So I don't really have, like, anywhere because I can't wear my watch while you compete. So I can't really tell where like, what my numbers are.
So I have to go see so it's kinda, like, on us.
Or, like, I have it for the coaches sometimes if I'm going to, like, the far event. Sometimes I have like, sometimes we're on the floor warming up, and then I have an event right away. So it doesn't think occur to me to check because I'm always the last in line. It's either I'm the first in line and they're we're waiting on everyone else or I'm the last in line. And if I'm the last in line, that means I was rushing.
So
Mhmm.
That means I don't really have time. I just have to grab my tramp shoes or my tiger paws and run to the, event.
Mhmm. So is so, Jesse, is it that you're not seeing it coming? Because, like So Like, listen, Brianna, have you ever heard this an ounce of prevention is worth a pound of cure?
An Ounce of Prevention41:18
Yeah.
Have you heard that?
Yeah. Do you
know who said it? No. Benjamin Franklin. Do you know when he said it? No.
02/04/1735.
1735.
Let's let's do the quick math on that. 1835, 1935, 2035. It's 2026, so we take nine away from that. It seems like that might be one to two hundred and ninety one years ago maybe if my math is, like, roughly right. How come we haven't learned yet?
What Ben Franklin was trying to tell us, Brianna. What's going on? How come we're slow learners, people? Because I I have the same problem. Let me may I share something with Mhmm.
I was just on a cruise. I was gone for nine days. Every day I was gone, two travel days, seven days on the ship. I took all of my vitamins. I did all the things I was supposed to do for myself that I've set up previously.
I had a wonderful nine days. I got home, and the second day I was home, I didn't take my vitamins. What what's wrong with me? How come I forgot? Do you know what I mean?
Like, how come Yeah. Why is it hard to pre bolus? How come come we don't wanna, like, make sure we're okay before we start, but we're willing to be dizzy for an hour afterwards, etcetera? It's a human thing. You're 11.
I'm not asking you for for an answer. Okay? I just think it's an incredibly common problem, and but you have a very specific use case. So, like, it feels to me like somewhere in here is I don't know. Like, I hear what you're saying.
Like, I can't stop because nothing's wrong, but then eventually, you have to stop because something's wrong. So why not stop first for less time, stop the problem, don't be low for an hour on the trampoline, enjoy the whole thing. Does that make sense? Yeah. Okay.
Then tell me, just from your brain, why doesn't that happen?
Probably because I rush for water breaks and stuff.
Okay. That's it. You just think you're not focused on it?
No. I prob I don't think about it.
But do you think go ahead, Jess. Sorry, Jess. And you're welcome, by the way. You don't have to pay me. I'm just I'm just here asking questions.
Go ahead.
I I this this conversation, and I think you hit the nail on the head, it's a well, I was gonna say it's because 11 years old, but it's all you're right. It is also a human factor because why don't we
I just had a conversation like this twenty five minutes ago with a 22 year old, so I don't know what you're talking about. But So
in alright. In my mind, I I just pray that it's just because it's an 11 year old. You know? But at yeah. I I get it.
It's so it happens in school too. Like, we're kinda like she has a whole nurse story where she had substitute nurses for a year, and it was it was miserable.
Because my nurse was out with a wrist injury. So we were like there's a bunch of sub nurses. One of them, one time called me down. So I had gym in, like, four hours. Four hours.
And lunch didn't happen. Snack didn't happen. I was 90. They called me down, worried. They were like, you need to get up before gym, which was in four hours.
And I'm like, okay. I still have lunch and snack for gym. And they were like and they were really worried because they thought it would be low for gym, and it had to be, quote, unquote, 90 for gym. But the orders said 70 no. Sorry.
80. But they crossed it out in pencil, and they wrote 90, which they said the doctor signed these orders, but the doctor didn't sign 90. So
The weakest link is always people. I just wanna say that. I just think listen. I could tell you that I sat I don't even think this person would mind me saying that I'm not gonna use their name, but I sat with a a woman in her forties five days ago who told me, I don't know. I can't get myself to do it.
So I think it's everybody. I think it's a problem. I think that this isn't how we live, but you have a real opportunity, Brianna. You have a real opportunity to just make some slight changes about how you do things and I just think alleviate a lot of problems for yourself.
Because, like, even in school, we're kinda like, you know, before you even hit 70, why are why are we not having the snack? Like, why are
we not
having like, just little things like that. You know?
But I was 90 stable, and they called me down worried because I had gym in
a couple. Well, not that not that I don't think your dad means that situation. Like, when you're 85 diagonal down, you look at it and you think, it's gonna stop. Right?
Mhmm.
Yeah. You don't think
I typically
Go ahead.
Once I'm, like, in the eighties and I've been continuing to go down, then I probably pop a few gummies. And then when I'm, like, in the seventies, then I pop the rest. And if I'm, like, 60, I pop a couple more.
Okay. Well, listen. First of all, let me say this. I I you sound, like, terrific, and I think you're doing a great job. It's not these are certainly, like, just edge case ideas.
I mean, let's tell people. What's your a one c?
A 6.1, and Doing Great46:33
I think your last was six two. 61.
That's awesome.
I think it was 62.
You bowl you bowl us for your own meals? Do your parents help you?
I bowl us for my own meals.
Well, you you're doing fantastic. That's the first thing to say. Right? Absolutely fantastic. This is these these are tiny adjustments on the outside of of the of the bigger thing.
It sounds like you're doing terrific. You are a lovely kid. I'm enjoying talking to you very much. You're smart and thoughtful, and I'm sure your dad and mom are very, very proud of you. I know.
Just talking to you for a little bit, I feel very proud of you for how well you're taking care of yourself. That's all awesome. I'm just saying this is a big idea that you could work on a little bit. I think it would make a huge difference in your life. I think I think, Brianna, twenty let's just say ten years from now, you come back on the podcast and you're like, Scott, I took that advice.
It changed my life. Let me just tell you of all the ways I'm happier now. And, and that wouldn't that be lovely?
Yeah.
Yeah. Absolutely. And by then, podcast would probably be like holograms maybe or something like that. Yeah. Who would even know what it's gonna be?
Can you even imagine what technology is gonna look like in ten years?
It's gonna be like flying cars.
Uh-huh. No. They always said the cars are gonna fly around.
Thought. Are you are you gonna retire, and is Arden gonna take over the podcast?
I listen. I explained to Arden. What we have here is what they call a turnkey business, but she doesn't she's busy wanting to be a forensic psychologist at the moment. So Okay. Although, I think that'd make a great podcaster.
I don't know what she'll do. She's she's gonna be 22 in a couple of weeks. Do know what I mean?
Still young.
Yeah. Right. Right. She's very young. She just got her first job.
She's out working. You know, we're still at the point where I'm like, hey. You forgot this. And she's I like, don't need you to tell me what to do. And I'm like, oh, man.
It's been sitting here for four days. So it feels like I'm just I'm not telling you you need it. I'm just trying to remind you. I'm trying to love you. And, but it it's not her.
Do know what I mean? Like, it's not her. It's not my relationship with her. Everybody listening has this happening in their lives. It's just I don't know.
I don't really know how to put it. I can I can explain it, but I don't know how to quantify it? People just we you know, I I found myself saying it this way recently. Brana, this is getting boring for you for a second. Hold on tight.
Okay? For my entire life, I've been told the American health care system is terrible. There's not enough prevention. It's only about taking care of disease once it comes. It's the it's the fault of the doctors.
It's the fault of the system. It's the fault of the way it's set up. It's the way I think it's just people. Yeah. I just really think that that it's hard to focus on something that hasn't happened yet.
And this is what, you know, the outcome is. Now I bet you didn't know, Brianna, that Benjamin Franklin was a was a a genius way before, way before people knew. He was writing books telling people how to you know, telling people about common sense and all this stuff. This ounce of prevention is worth a pound of cure. Means go for a walk before you gain 50 pounds.
You know what I mean? He means put down the cigar before you cough and you die, like that kind of stuff. And, it's taken three hundred years and I don't think we heard him once. So I don't know what to say other than you can't fix the world, but, you know, you can do something for yourself. So Yeah.
Not everybody's gonna do it, but some people will.
Mhmm.
Yeah. Alright. Well, you listen. You're fantastic. Obviously, know this already.
Brandon, tell me a little bit about, your management. I wanna know about pod changes, CGM changes. Do you feel do do you understand how valuable the technology is, or does it just all seem common and normal to you? So what's it like using all that technology?
I love the Omnipod, but it the control is very not so great. My I've had so many dysfunctional pods lately. They've the last three have ended early because they either they all were low on insulin, which is not the pod's problem, though. But, like, a lot of them have been leaking. Like, I've had to change a ton of pods early.
Pods, Leaks, and the Algorithm50:59
Yes, sweetheart. Some of them got recalled. Did you go through them and pull out the bad ones?
We we already got rid of the bad ones, but, like, they they've seemed to be different ones that were, like, not working.
Oh my goodness.
They're random ones.
Did they replace them for you?
Yeah. Omnipod's great at replacing.
Like, Insulin's amazing. Problem.
Yeah. It's a good company. It really is.
They're, like, no problem replacing. Everyone's really nice.
Yeah. Brianna, could you say omnipod.com/juicebox for me?
Omnipod.com/juicebox.
Thank you. Very good. That's excellent. I would like to say I'll split the clicks with you, but I'm not going to. I don't wanna lie to you.
You're a child, and I don't think it's right to lie to you. Okay? Are you on the social media on the, what do they call, the TokTik and, Instagram, stuff like that? No. No?
Do you want to be? No. Good. Never go on it. Okay?
I'm I'm giving you great advice here, Brianna. We can build a life around this. Ounce of prevention worth a pound of cure. Stay off TikTok. Don't look at Instagram reels.
Okay? It's it's like it's it's it's like a drug for your brain. You don't need it. Do your friends do it? These friends?
Are they scrolling?
No. Not really. Awesome. The boys in my class, though.
Well, boys, we don't care about boys. They're dirty.
Yeah. Boys are annoying.
No. Of course, they're annoying. I'm annoying. Trust me. I was just I was an hour ago, my wife's like, can you rub my head?
I rubbed her head, then I said something. She goes, I don't find this part fun. I was like, okay. It's like, fine. I'm I'm I'm she still doesn't like me.
That's not the point. The point is this. I'm wondering if people your age are are they is the is the flow coming after the ebb? You know what I mean? Like, is social media becoming a thing that kids are rejecting a little bit now?
Like, the kids in, like, my grade are not really super, like they're not, like some of them are, like, always on their phones while some of them, like, actually, like, having fun and actually, like, hanging out. But then, like like, everyone's just, like, in group chats. Can I hang is anybody available? Can you guys hang out? And most of the girls don't play video games, but I feel like all the boys who play video games
Mhmm.
They're already, like, trapped and they can't get out of it.
Yeah. What what are they playing on their phone? Clash of Clans?
They're playing, Battle Royale.
Battle Royale? That's the one I meant. Okay. Right?
And then what's the other one? There's one more. I can't think of it.
Mhmm. Mhmm. You're here to help people?
On Roblox. Anything on Roblox. Roblox? Yep.
Okay. And you girls are you're upset by this? The boys are silly?
Yeah. Yeah. But we don't care because
It's smart. It's very smart. So they're out there messing around. The girls aren't doing it so much anymore, and I think that's good. I think that's a that's good movement.
And what are you doing with that time instead? I mean, I know you're doing trampoline, gymnastics, but what else are you doing?
So when I'm not doing that, I'm also doing camp or I'm on vacation. Outside. School and homework.
Yeah. But you like being outside?
Yeah.
You guys near the beach?
We're like we we're really close to 6 Flags.
Oh. Oh, that's right. We live oddly close to each other. Right? Jesse.
Right?
Yeah. Yeah. We're a couple of towns over. Yep.
Yeah. Yeah. Yeah. We we live very, very close to each other. Is it possible we've seen each other at a shop right or a Wawa one time?
We didn't even know it.
It's probably possible.
It's absolutely possible. I try to stay out of the Wawa now. There's not much in there for me. Not since I've, been on the GOP, as you know. Any other prop
time like, the last time I went to Wawa was, like, a while ago. It was when we were in Pennsylvania, and we got watermelon from there. That's all we got.
I I listen. This is this is just between me and Wawa right now, but you guys, you've ruined soft pretzels for the world. Everybody thinks those terrible pretzels that you sell are pretzels. We all know they're not. Why not just team up with the Philadelphia Pretzel Factory or something like that?
And and you know what I'm saying, Jesse. But these these cakey terrible oh god. I'm gonna curse and you're a small child here. That's how bad I hate these pretzels. Do better.
I mean, you you you got all that money to give to Jason Kelce. You can't give a little bit of it to pretzels? Am I wrong? Are you a Phillies fan, Brianna? No.
Oh my god. Are you you're a Yankees fan, are you?
Yeah.
Oh my gosh. Your father's let you down. You know that. Right?
We watch hockey though a lot.
Rangers or the Islanders?
The Devils.
The Devils. Oh my god. Terrible. I mean, they just they ruined my childhood.
Yeah. Devils devils are killing me.
Yeah. They're not that good.
Jesse, are you old enough to to understand that a trap defense ruined my teenage years?
If I no.
That's not a reference you understand?
No.
Okay. Well, the devils played in a horribly boring version of defense.
Oh, yeah. Yeah. Yeah. They're trapped. Yes.
Yes. Yes. Okay. And they ruined Eric Lindros in all that time for us. I hope everyone's happy.
Please.
The devils the devils were solid back then.
Yeah. They had Brodure.
Not so much.
When Brodure was their goalie.
Brodure, Stevens, Danica. They're they're they used to be good.
Yeah. They used to be Yeah. Yeah. No. Not no more.
I see. They let New Jersey down. Brandon so, Brandon, you have good friends. You guys get together. You go to each other's houses.
Sounds like you're outside. You're staying off your phones, doing your homework. I like all of this. What do you want this is a very early question. You're gonna change your mind 10 times between now and then, but do you have any idea what what what are some of things you've been interested in, and where do you see yourself going after high school?
Nurse or Endocrinologist57:03
So I think I wanna go to college. I'm probably wanna be a nurse.
Oh. Oh, that's nice. My, daughter's friend, Nadia, she was here last night. She just graduated with her undergrad and in September, she's starting nursing school.
Nice. I'm either gonna be a nurse or an endocrinologist.
Oh, wow. Gonna go all the way?
Yeah.
That's good, Jess. You could just work another fifty or sixty years and and get all that taken care of for the college.
Well, I'm hoping that my wife, she
works Still works.
A nurse, and I hope she stays there. Oh, free tuition. I hope my daughter goes there. Oh. That's the plan.
Jesse's like, listen. Honey, do whatever you want. We just want you to be happy. As long as that happiness happens at Rutgers, that'll be fine. Or
or if you're gonna go someplace else, pick the place and, hopefully, my wife can get a job there and she could also get the same bathroom.
Unless mommy can get a job somewhere else. This is one of the greatest things. I have a friend whose kids both went to Princeton. He worked on the ground crew there.
That's amazing.
Yeah. That's awesome, isn't it? He went there absolutely free. He cut a lot of lawns and put down a lot of roads, and I know why he was doing it.
Yeah.
Yeah. Hey. Good dad. Alright. So what do I what am I not asking you, Brianna?
Like, what should I know about living with diabetes that you know and you wanna share with people?
If, like, if you're newly diagnosed, it's all gonna be okay. It's gonna be hard in the beginning, and giving yourself shots doesn't hurt after a while.
You stop worrying about that?
Yeah. Yeah. And the Omnipod is a good pump if you're a little kid, but, like, the control is not great. But the
What do you mean? Like, the screen?
Replaced a lot.
The like, you don't like the screen where you interact with it? What are you telling me about the control of it?
I feel like it just doesn't it doesn't, like, have great control like these other pumps and, like, the algorithm's not so great. But
You're 11. Where better. You're 11. Where'd you hear that from?
Your podcast.
Wait. You listen to the podcast?
Yes.
I didn't say I've never said those things, by the way. I just wanna say that. But
coming directly from me. She's she's she's, like Yeah.
That's from him. He he said he said that it sucks, and that I had a choice to do it. I
I don't think the Omnipod's aggressive enough, like, with the highs and stuff. And I think part of it part of it is, like, the way we're the way we do things and the way like, sometimes she'll forget to pre bolus. Sometimes she'll forget to bolus at all. And then once we get high, it's like a mountain to get her down.
Did you did you switch to the hunt the new 100 target?
It won't let us.
It's really weird. What do mean it won't let you?
Your pod does not support this.
Your pod doesn't support this. So you need new pods so you can do the 100 target?
I'm pretty sure.
How many how many pods do you have left before you get to that?
I don't know. I thought like, we had the g six, g seven pods. I don't know if there's a newer one.
Have you called them to ask?
Yeah. We so we literally just tried the 100 thing, like, yesterday or the day before.
Oh, okay.
So Yeah.
I think it's gonna be valuable for you. I also think that
I agree.
Yeah. I also am very, sort of excited after talking to them recently about about some things. I'm excited about the Omnipod six too. Yeah. So you've never used the Go ahead.
I'm sorry. I I've called them before for, like, different, like, you know, gymnastic strategies. Like, we we've had issues where because she's tumbling around and bouncing around like crazy. Like, I feel like every day after gymnastics, whether it's the morning or sometimes it makes it to the evening, the day after a gymnastics
practice. COL.
Like, I feel like the cannula just kinda wiggles its way out or something.
Yeah. I've That one's easy.
I've called them to say, hey. What what strategies can we do? Like, is it is there different different overlays other than the pod pals? Are there different
We use the ones with, like, the strap that goes over it. Those work better, but we like, they told us this technique that, like, instead of, like, pinching it when you put it on, like, stretch out, like, the skin a little bit. So it goes on and there's, like, room for it to move, and we I don't think we've had a single leaking pump since we tried doing that.
That's cool. But I have a better, option. Do know what Vetrap is?
We we used to use that, but I don't like it.
Well, you don't have to like it for it to work.
It's really uncomfortable.
You know what else is uncomfortable? Changing your pod.
Using a lot of insulin, changing the pod.
Jesse's That rap is Jesse's like, listen.
Can you come to my house? Can you come
to my
house and just say things while you're walking around out loud? Well, does it help you, Jesse, to know that you are saying things to your daughter that all of us are saying to our kids and adults with type one are quietly saying in their own heads to themselves?
It it's it's funny. And it's funny you said TikTok. I literally watched a TikTok video yesterday, and it was of a kid, you know, like, 18, 19, 20, or whatever going on a date. And he walks down to the car, and he opens the passenger door and lets his girlfriend in and then closes the door. And the caption of the video was essentially like, your kids are always paying attention.
At least he learned something or whatever.
At least he learned something.
Yeah. And it and I'm like, well, you know, it's it's true because your kids do listen, you know, and she's she pretty much said everything I've said. Whatever she said that's good or bad, I've said it.
I've learned to believe that some of it's gonna stick and some of it's not, and I'm not in control of what parts stick and what parts don't.
A 100%.
Yeah. And that hopefully, one day, if one of the things that didn't stick creates an issue, that their personal interaction with that issue will lead them to pivot and make a change. And if they don't, then I think we're at the part where we say people get to do whatever they want with their lives, and it's not up to somebody
else's thoughts. You just teach them as many good things as you can and hopefully and she has enough of those good things to take away that, you know, make
Yeah. Listen. I mean
poor character good.
Sure. Ben Franklin tried three hundred years ago, but maybe five more years is all Brianna needs. Brianna, everything that you've ever heard, like a t shirt slogan or a saying, those things are common because those are the things that people struggle with that other people are constantly saying all the time.
Yeah.
You know what I mean? So just pick a couple of those things and and be kind to yourself and do them.
Mhmm.
You know what I mean?
Kids Are Always Watching1:04:06
Yeah.
You have brothers or sisters?
I have one brother.
Are you smarter than him, do you
think? Yes. Mhmm.
How old is he? Seven. Oh my well, you should be. He's seven. Well,
I was smarter than him at his age anyways.
I'm sure he'll.
Because he watches these, like, YouTube videos. They're, like, brain rotting, but I did it. I had to watch educational shows when I was really little, and I'm really smart.
So Jesse, what happened? You give up after the first one? Yeah. Yeah. I get tired.
It was mom.
So Oh, your
mom get don't say well, I don't think it's a good thing for us to say that your mom gave up.
Gonna say too much. Okay. Alright. She was very she was strict with Brianna, and that has gone out the window. And and to be honest with you, like, I think since the diagnosis, we've we've definitely let a lot of stuff go, as far as just not being overwhelmed all the time or whatever.
But there's times where you're just tired or overwhelmed and, yeah, we we definitely have let changed perspectives and changed the way we do things a little bit.
Mhmm. No. I mean, listen. Maybe you've heard this the the saying something's gotta give. Yep.
Yeah. Yep. Exactly. Brandon, when you grow up, if you when you come back in ten years, when I will be, by the way, a 64 year old making a type one diabetes podcast, You tell me if this rings true. Moms have a strange and very interesting connection with their firstborn sons.
You see if that comes true. Okay?
K.
Alright. My my wife treats my son like he's the king of, the world. And sometimes he's not, by the way, and that doesn't seem to matter. That boy is her that's her boyfriend, that kid. You know what I'm saying?
Is your mom super nice to your brother?
Yep. Yeah. Do you
feel like he's not being, given the same rules because she likes him better? Yep. That's not why, Brianna. It's what I just told you. Okay?
There's a weird mystic connection between ladies and their sons. I don't understand it completely. But I only have forty more years, so I'm still trying to figure it out. Okay?
Figure it out. Yeah.
Yeah. I'm I I think I'm gonna get my wife figured out by the time I'm 80 for sure. Yeah. Yeah. Because then I can figure out my can I say something on the podcast that I'm hopeful no one ever hears in my own life?
I watched Arden last night yell at Kelly for something that she does too with, it felt like zero understanding that she was telling her to do something that she also can't do. Was it was fascinating.
Yeah.
One more context. She Kelly just had a procedure. She's supposed to be taking all these pills and vitamins and everything, and Arden goes, mom, just take this vitamin d. You just had this whole thing done. They told you to take this every day.
It's not hard. It's one pill. She used all of those words. I looked across the room and tried to hold the laugh inside of my face for as long as I could. Mhmm.
Because the very next day, said, Arne, hey. Don't forget these pills. And she said, I don't need your help taking my pills. I said, you haven't taken them in a week. Yep.
That's it. I don't know what's wrong with this.
Remember that lecture?
You get that one, Brown? Yep. Yeah. Are there pills you're supposed to be taking?
Well, I have vitamins that mom has me take sometimes, But she said, you don't like them. Well, nobody reminds me to take them, so I kinda forget about them. And my brother she puts them on my brother's place for him in the morning.
Well, that's
And I make my own breakfast to help her out
Uh-huh.
And she can't remind me to take them.
Unbelievable. What an what an absolute ingrate your mom is. Yep.
This is our life.
It's every hey. Listen, Jesse. It's everybody's life.
Yes.
So, sweetie, can you not set a timer on your phone?
I probably could, but I don't wake up at the same time every morning.
So tell you this. You wanna really get at your mom? You take your vitamins and set the vitamins out for your brother. That'll get her. Oh, she'll hate that.
And they'll make his breakfast.
Oh, yeah. Yeah. Oh, oh my god. She'll she'll she'll she'll pop up before you the next day. You'll be like, oh, you're up early.
Never let her also, never let her never let her hear this. I don't want her coming for me. I feel like she could probably find me.
Breakfast and her coffee.
Oh, you well, listen. Let's not get crazy. You got it. You got you gotta get out the door and get to school.
Yeah.
I got yelled at this morning for making a hardened breakfast. I said, hey. I got I I said I was up, so I got some stuff together for you. I thought it might help. I don't need help.
I didn't say you needed help. I was doing a nice thing. She went, mhmm. And that was the end of it. I have no idea what we're talking about half the I just all I know is I went up to my wife and I said, why are you all trying to kill me?
That's all I said. Said, do you have any idea how much I'd get done if everyone left me alone for five minutes? Nevertheless. Alright. So you wanna tell people it gets easier, shots don't hurt as much anymore, not something you're worried about, technology's good, you wish it would get a little better.
Have I heard everything? Also, I heard your dad say at one point, it's not aggressive enough even when we don't bolus. You know you have to bolus. Right?
I bolus, but sometimes, like, randomly when we go out to eat, I don't think. And then I just start eating, and I'm like, oh my god. I did bolus. Because when he reminds me because I completely forgot I had diabetes. I forgot, like, everything, and I was just like, oh.
I think for us too, like, going back to, like, the gymnastics, it's it's, like, it's not normal because we like, gymnastics nights, which is half the week, we're doing half boluses. So, like, our carb ratio and all that stuff for, like, gymnastic nights
Changes.
Would be cut in half if because of the activity. But then, like, on other days, like, show bolus, but we're not a it's just not the ratio is not a 100%. But then there's other days where, like like, now we're kind of falling into our summer routine where the bolus thing, it's we know the ratios are right because everything is good. Like, you you know, there's little activity right now. And
Yeah.
We're kinda transitioning, and numbers are good. And but it's
still weird. Imagine as the years go on, you'll you'll get better and better at all this, honestly. Because it it really does turn into an art form Yep. At some point. Yeah.
It just it's more of a feel. Mean, once your settings are good, it's more of a feel than it is a rule. Correct. Yeah. And it's just more time will will get you to there.
And, I mean, you already said you said at the very beginning, time is what got you this far already.
Yep.
So yeah. You guys I mean, you guys sound like you're doing great. Do you feel like you're doing great, Pearna?
Yeah.
Yeah. What what's the hesitation?
I just feel like sometimes I go really high and sometimes I get low and it's just, like, kind of annoying sometimes. Like Mhmm. Dad said I should switch to the Moby.
I mean, listen. I I think all the pumps work really well. I I think that if you do the thing you're supposed to do, the you know, they all some of I guess, each one of them has a shortcoming somewhere. Yeah. But if you do the things you know you're supposed to do, it should work.
I'm gonna guess that, like, another gen like, even the 100 target should be better for you because it's also not only is it a 100 target, but it also doesn't kick you out of automation as easily or for as long maybe if I'm right about that. And then
My my pump is really weird. Like, we went to a summit for breakthrough one time, and they were, like, talking about the Omnipod six, and it's, like, not supposed to kick you out of, automation, but mine never did that.
Oh, you don't have that problem to begin with. Yeah. Omnipod five, they just updated it about that automation kick out thing. And then six will come out. And then before you know it, as crazy as it sounds, you'll be wearing Omnipod seven one day, you know, or or or or Moby, Revenge of the Moby, or, you know, or whatever they're gonna call it.
By the way, if they use
I'm gonna I wanna switch to the, tubeless Moby, the Toby, when it comes out because I thought that would be, like, a good option because dad says I should switch to the Moby, but I don't wanna do tubes.
So Oh my god. Is the Yeah. Tubeless Moby gonna be called Toby? Yeah. I I just wanna
After say that, it's gonna be the Siggy.
What does that mean?
I don't know.
That means cigarettes, doesn't it?
No.
Alright. We gotta rethink that one. Okay. But I love Toby. By the way, when I when I pointed out that that your dad said that the algorithm wasn't strong enough, but that sometimes you don't bolus, I'm gonna guess about 45 to 50 marketing professionals spread across about five pump companies cheered in their cubicle somewhere.
Yeah. But but and even, like like, again, going back to the gymnastics, like, the bouncing it around and, like, leaky pumps, sometimes it's, you know, like, we think she doesn't bolus and then we go back and we look and we're like, nope. She did bolus, but the pump is just leaking. And it's it's related to the gymnastics because the, you know, the high level activity.
Yeah. But cannulas, you're gonna pull out from every pump.
Yep.
And and and and and fair enough that the the Omnipod is on body, so it rocks a little bit. Yeah. But, you know, if you cover it or hold it like, mean, listen. The answer is the Vetrap. She doesn't like the Vetrap.
The Vetrap would work.
I Yeah. Right. Yes.
It's like the ones the overlays with the strap over them work pretty well also.
Okay. They do help. My point here would be, it would be like buying a car, driving it till it ran out of gas, and then complaining that it ran out of gas because that's what cars do if you don't put gas in
them. Yeah.
And so you you do you know what I mean? Like, this is, like, this is not a perfect system. This is just Yeah. This is what exists. It's fantastic stuff.
I gave a talk to a bunch of kids on the ship, Juice Juice Cruise twenty twenty six that I just got back from. Juice Cruise twenty twenty seven going out of Port Canaveral, I think, wherever Orlando is, in, July 2027. Check out juiceboxpodcast.com/juicecruise">juiceboxpodcast.com/juicecruise for more information. And, another great group this year, not the point. We're sitting with a bunch of kids, and I tried to, like, gently, but, like, explain to them, like, how technology has moved through diabetes.
And the cruise attracts a really wide range of people. There's families there with young kids, middle aged kids, teenagers. There's adults with type one in their thirties, forties, fifties, sixties, seventies on the cruise. It's a really eclectic group of people that I've somehow collected through our little podcast here. And, I was able to point across the room when I was talking to the kids.
We did a breakout session by age, which was, peer led and and went really well. And I said, there are people over there who've had diabetes for more than fifty years and they didn't have any of this stuff. And if you went over to them right now and said, hey. Complain about your Dexcom. Complain about your Libre.
Complain about your insulin pump. They wouldn't. They because I've talked to them. They'd go, oh, it's terrific. Every once in a while, it does this, but it's not a big deal.
But a person who's hand you know, a person who's handed it three years ago in a world where, you know, where cars actually do drive themselves, not fly, and, you know, when other stuff like that's happening, you're like, well, the thing doesn't thing. Like, how come it doesn't do the thing it's supposed to do? And I think it's I don't know how to, like, how to get the perspective that you need to realize that there are people living right now with type one still whose parents sharpened needles in their kitchen or boiled vials so that they could, you know, reinject again or Mhmm. Peed on a stick to find out what their blood sugar was and you know? I mean, stuff's pretty awesome.
You know what I mean? Yeah.
The Long View1:14:07
Like It really is insane when you think about it. No.
It's yeah. You just have to have once I listen. It's day to day. It doesn't help you. I hear what you're saying.
You jump around while you're doing things and the cannula pulls out. That sucks. We need to get that fixed. But my god. You could be you could be shooting beef and pork insulin.
You know what I mean? Yeah. You you you we'd be talking about in ten years? You'd be talking about you'd be talking about bad stuff. You know what I mean?
So Yeah.
And that's we like, we're we're a 100%, like I mean, it it's absolutely amazing. It's like, I think for us, it's just, like, the the the word that hits it hits it is frustration. And it's just like you go high and it's like, oh, we're high again. And it's like and and it's kinda like you said, the preventative. If we did little steps to prevent it, maybe that would improve because, like, once you hit that high and it's stubborn and, you know, and then now we gotta change the pod after two hours because it's not going down.
It there were things that we could have done to help help try to prevent it.
Yeah. I mean, listen. That right. That's the human condition right there around diabetes. So, like, you just have to figure out.
I'm not, like, I'm not coming down on you. I live the same life you live. You know? But I do find it valuable once in a while to step back. I just put an article up on the on the website for the podcast the other day, and it's just about even, like, how many people actually use insulin pumps.
It's a shockingly low number of people with type one diabetes. You know? And some of them are because it's access or some of it because money, and some of it's just because they just don't do it. CGM is being adopted at a greater rate than pumps are, but still there's plenty of people walking around right now shooting insulin with a needle and chestnut blood sugar with a meter.
Yeah.
So, anyway, you guys are, you're the masters of your own reality. You can do whatever you want. It's not up to me, certainly. I'm probably going to, push off into this day right now and ignore my own advice. So I'm I'm certainly
Just as just as we will. You know? It's
just Exactly. Although, I really might end up with one of those Philadelphia soft pretzels at some point now that we've talked about that. They're still not the best, Jesse, but they're better than what's going on now.
Yeah. I I agree.
You ever have the ones that they used to sell on the street in Philadelphia?
Oh, yeah.
Those are the best.
Yeah.
Yeah. They kinda tasted like exhaust a little bit, but once you got past that, they were the best pretzels.
They they they had they had a very unique flavor.
They did. Do you know how that all used to work? There's a place down there on, the boulevard, outside of of like, in Northeast Philadelphia that made them. I don't know the name of the place. But a lot of transient and homeless people would go in there and they with a little money and they'd buy the pretzels.
Then they go to the traffic light, sit at the light, and sell the pretzels at red lights. And people hearing that might be like, that's like, maybe you think that sucks or something. It's one of my, like, wonderful memories of growing up. It's like my dad seeing those guys and going, oh, hey. You know, let's stop and give this guy give this guy a hand and grab some pretzels and stuff like that.
I know he just peed in a bush, and I didn't care. You know what I mean? Like then he handed you know, we gave him a dollar a dollar for a bag of pretzels, and my dad would give him an extra dollar for himself. And then, now you go to this other place and seven pretzels is $19. I don't you're all I I can't take it, Jesse.
I'm done. Okay? This is it. Brianna, a pretzel's gonna cost $95 when you're my age. No.
No. I swear. You better get a job being the president of the universe or you're gonna be in trouble. You won't never have a pretzel. Alright.
You guys are awesome. I really appreciate you doing this. Brianna, you said everything you needed to say?
Yeah. Alright. But pretzels have been getting worse.
Thank you. I I'm glad I'm not the only one seeing it. God bless you and stay off TikTok for god's sakes.
Yes.
Okay? You don't need that. What do you need to do, Brianna? Give me your top three things you're gonna do moving forward. Go.
Make sure I pre bowl this.
Right.
Win nationals
Right.
And get my a one c to a five.
Well, listen. If I was you, I would've done the I would've done the vitamin thing to piss off my mom. But you do whatever you want. You do whatever you want.
Yeah. Yeah. I can do that too.
Do whatever you want, but, man, that would that would probably bring me a lot of joy if I was 11. I just wanna say.
Do that. Yeah. Yeah.
Yeah. Like, mom, don't worry. I already took my vitamins and and got them out for the boy. He they're all set right on the table.
And made his breakfast.
And and I put a little breakfast over there for him. I'll see you later. I hope you have a good day. You don't even say anything else. You just roll right out of the house.
She'll seethe all day. She'll probably yell at your dad. I just want you to know that's
And I painted the shed and I made
some cough.
Let's not get crazy. Let the let the parents do the the big stuff. Okay.
Dad's gonna make me paint the shed though.
You know what I did this morning before? He's gonna make you paint the shed?
Yeah. Good
job, Jesse. Nice job. I pulled weeds this morning before this.
I don't know how to paint a shed.
He'll teach you. It'll be a nice memory. You'll love it.
If she does it, that'd be cool. I'll take it.
Yeah. Alright. Listen. I gotta go. I gotta wrap up call about the cruise right now with Suzanne.
We gotta talk about what went great what we wanna change for next time.
Yeah. We'll we'll definitely look into that because that seems like a really fun event.
Brianna, we had a great time. We really did. It's it's awesome. I I'll I'll tell you right here at the end. First year we did it, really good.
Some people are like, oh, I wish the ship would have been a little, like, more modern. So I think we might have overcorrected the second year. We were on, like, a really great ship, but it ended up being a little more expensive, probably too expensive for some people. And there was a little less to do for the kids on that ship. It was a little more of a an adult or adults with, like, calm children experience.
So now we have found the nice middle ground, between nice, child friendly, and more affordable, we're we're super excited about. We think this is the one that's gonna strike all the balance that we need. And, you know, maybe we'll look back one day during juice cruise twenty and say, you know, the first two years, we're we're getting going, but we really figured it out in the third year. So that's what we're shooting for. Yeah.
Alright, guys. You guys are terrific. I appreciate you doing this very much. I'm gonna, I'm gonna go live my life. I hope you, have a great summer, and good luck at Nationals.
Thank you.
You're very welcome. Have a great day.
You too. Thank you so much.
Oh, it's a pleasure. The conversation you just enjoyed was brought to you by US Med. Usmed.com/juicebox or call (888) 721-1514. Get started today and get your supplies from US Med. I'd like to thank the Eversense three sixty five for sponsoring this episode of the Juice Box podcast and remind you that if you want the only sensor that gets inserted once a year and not every fourteen days, you want the Eversense CGM.
Eversensecgm.com/juicebox. One year. One CGM. To learn more and see if you might be able to get Twist from the pharmacy and try it for free, head to visit.twist.com/juicebox. That's visit.twiist.com/juicebox, or give them a call at 18774.
That's +1 (877) 489-4478, and tell them Scott sent you. TWIST requires a prescription and is indicated for people with type one diabetes ages six and older. If you'd like to hear about diabetes management in easy to take in bits, check out the small sips. That's the series on the Juice Box podcast that listeners are talking about like it's a cheat code. These are perfect little bursts of clarity, one person said.
I finally understood things I've heard a 100 times. Short, simple, and somehow exactly what I needed. People say small sips feels like someone pulling up a chair, sliding a cup across the table, and giving you one clean idea at a time. Nothing overwhelming. No fire hose of information.
Just steady helpful nudges that actually stick. People listen in their car, on walks, or rather actually bolus ing anytime that they need a quick shot of perspective. And the reviews, they all say the same thing. Small sips makes diabetes make sense. Search for the Juice Box podcast, small sips, wherever you get audio.
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