#1775 Bear Attack - Part 1
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or wherever they get audio.
Domino shares her journey from necrotizing pancreatitis to mastering Type 3c diabetes, discussing the loss of glucagon, the "brittle" label, and using technology to reclaim her health.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner (0:00) Welcome back, friends. (0:01) You are listening to the Juice Box podcast.
Domino (0:14) Hi. (0:15) My name is Domino. (0:17) I'm 50 years old, and I am a type three c diabetic.
Scott Benner (0:23) Alright. (0:24) Let's get down to it. (0:25) You want the management stuff from the podcast. (0:27) You don't care about all this chitting and chatting with other people. (0:30) Juiceboxpodcast.com/lists.
Scott Benner (0:34) They are downloadable, easy to read, every series, every episode. (0:39) They're all numbered. (0:40) Makes it super simple for you to go right into that search feature. (0:43) In your audio app, type juice box 1795 to find episode one seven nine five. (0:50) Juiceboxpodcast.com/lists.
Scott Benner (0:54) If you're looking for community around type one diabetes, check out the Juice Box Podcast private Facebook group. (1:01) Juice Box Podcast, type one diabetes. (1:04) But everybody is welcome. (1:05) Type one, type two, gestational, loved ones, it doesn't matter to me. (1:10) If you're impacted by diabetes and you're looking for support, comfort, or community, check out Juice Box podcast, type one diabetes on Facebook.
Scott Benner (1:19) Nothing you hear on the Juice Box podcast should be considered advice, medical or otherwise. (1:24) Always consult a physician before making any changes to your health care plan. (1:29) This episode of the juice box podcast is brought to you by my favorite diabetes organization, touched by type one. (1:36) Please take a moment to learn more about them at touchedbytype1.org on Facebook and Instagram. (1:43) Touchedbytype1.org.
Scott Benner (1:45) Check out their many programs, their annual conference, awareness campaign, their d box program, dancing for diabetes. (1:53) They have a dance program for local kids, a golf night, and so much more. (1:59) Touchedbytype1.org. (2:01) You're looking to help or you wanna see people helping people with type one, you want touched by type1.org. (2:09) Today's episode is also sponsored by the Tandem MOBI system, which is powered by Tandem's newest algorithm, Control IQ plus technology.
Scott Benner (2:18) Tandem Mobi has a predictive algorithm that helps prevent highs and lows and is now available for ages two and up. (2:24) Learn more and get started today at tandemdiabetes.com/juicebox. (2:30) The podcast is also sponsored today by the Eversense three sixty five, the one year wear CGM. (2:38) That's one insertion a year. (2:40) That's it.
Scott Benner (2:40) And here's a little bonus for you. (2:42) How about there's no limit on how many friends and family you can share your data with with the Eversense Now app? (2:48) No limits.
Domino (2:49) Hi. (2:49) My name is Domino. (2:52) I'm 50 years old, and I am a type three c diabetic. (2:58) And, actually, today is my one year diary versary.
Scott Benner (3:03) No kidding.
Domino (3:05) No kidding.
Scott Benner (3:05) Way to make it a year. (3:06) Good job.
Domino (3:07) Right.
Scott Benner (3:07) That's awesome. (3:08) Three c, transplant, surgery, what happened?
Domino (3:13) Total pancreatectomy.
Scott Benner (3:16) Oh, why? (3:16) What led to it?
Domino (3:18) So I was diagnosed with the rare condition called nestioblastosis.
Scott Benner (3:25) What the hell is that?
Domino (3:28) They're still figuring it out.
Scott Benner (3:31) They has a name, but they don't know what it is?
Domino (3:33) Yeah. (3:33) It's it's very new. (3:35) It's more it's still rare, but more common in infants.
Scott Benner (3:39) Okay.
Domino (3:41) So it took about six years for them to diagnose me.
Scott Benner (3:45) Do you know how to spell it?
Domino (3:47) I do know how to spell it.
Scott Benner (3:49) Go. (3:49) Do it.
Domino (3:50) N e s I d I o b l a s t o s I s. (3:59) Jesus. (4:00) So nasidioblastosis.
Scott Benner (4:02) Well, I'm gonna let Google Gemini look into it for us.
Domino (4:05) And it's complicated, but, basically, my pancreas had a overgrowth of cells, so it was overproducing insulin.
Scott Benner (4:16) Wait. (4:17) You had oh, you had too many beta cells.
Domino (4:19) I had too many, and they just went high waiter, so it was flooding my body with insulin and causing seizures and severe hypoglycemic episodes.
Scott Benner (4:33) Oh my god. (4:33) Took
Domino (4:34) almost six years to diagnose it.
Scott Benner (4:36) Wait. (4:36) You lived like that for six years?
Domino (4:39) Yes.
Scott Benner (4:39) Alright. (4:39) We're gonna get to that. (4:40) But first, make sure I understand this correctly, Domino. (4:43) You are probably one of my biggest fans. (4:45) Is that true or not?
Domino (4:47) Absolutely true. (4:48) You are so nice to me. (4:49) Go down that road whenever you're ready.
Scott Benner (4:52) You are so nice to me online that I I judge everything my wife says to me on the level of, is this as nice as Domino would have been to me in this situation? (5:01) So, but yeah. (5:03) Well, I I wanna figure out how you got here. (5:05) But first, honestly, like oh, so here I have it. (5:09) I don't know how to say it.
Scott Benner (5:12) It doesn't matter. (5:12) A rare medical condition characterized by an abnormal overgrowth of the beta cells in the pancreas. (5:18) Man, talk about the wrong jeez. (5:20) Everybody else is looking for beta cells, not you. (5:23) You got too many.
Scott Benner (5:23) Right.
Domino (5:24) Right.
Scott Benner (5:25) Two distinct forms of the condition based on when it appears, congenital in infants and acquired in adults. (5:31) This is extremely oh, good. (5:32) Domino, good news. (5:34) You have an extremely rare condition. (5:37) In adults in recent years, it has been increasingly linked to gastric bypass surgery.
Scott Benner (5:41) Have you had gastric bypass surgery?
Domino (5:43) So yes and no. (5:45) Before I had these symptoms, I went ten years misdiagnosed with, deadly internal infection. (5:54) So I did have removal of the stomach, some re reconstruction of the digestion and the intestines from just saw the damage from that ten years of infection that went undetected.
Scott Benner (6:09) Do you have did you ever find out what the infection was from?
Domino (6:12) They don't know where it started. (6:15) I had surgeries that it could have come from that. (6:19) They don't know if I got it in the hospital. (6:22) But yeah.
Scott Benner (6:23) Oh my gosh. (6:24) That's terrible. (6:24) I'm sorry. (6:25) Yeah. (6:26) Let me finish reading for a second.
Scott Benner (6:27) In these cases, the condition sometimes called non insulin insulinoma pancreas Jesus. (6:33) Why do people name stuff like this? (6:35) Non insulinoma pancreas to hypoglycemia syndrome or n I p h s can develop I guarantee I didn't say any of those words right. (6:46) Can develop years after the weight loss surgery likely due to hormonal change in the gut that stimulates beta cell growth. (6:53) How come they can't stimulate beta cell growth for everybody else?
Domino (6:56) Right. (6:56) I know. (6:57) Uh-huh.
Scott Benner (6:58) They're doing it by mistake in you. (7:00) Yeah. (7:01) So how did it start? (7:03) Did it start, like, just with a bang or a whimper? (7:06) Did it did you slowly start feeling lightheaded and shaky, or was it just, like, full on hypoglycemia?
Domino (7:13) It was sporadic at first. (7:16) So that ten years of the misdiagnosis and then finally treating that and and did the major surgery with all the damage. (7:24) I mean, they were having to dilate my esophagus and, you know, a lot of just GI removal and and reconstruction. (7:34) After they did that, I did start feeling better. (7:39) And those ten years and actually right up until that, I was not doing well.
Domino (7:46) I've had done my will, all my end of end of life stuff. (7:51) I was on oxygen. (7:52) I mean, I was very sick. (7:54) I had, you know, infection just
Scott Benner (7:58) Constant.
Domino (7:59) Riddance, yeah, throughout my body for those ten years.
Scott Benner (8:02) Oh my gosh. (8:02) From what age to what age do you think?
Domino (8:05) Oh gosh. (8:06) So 2008 to 2000 actually, 2007 to 2017. (8:13) And they finally diagnosed me with that infection in 2017. (8:19) And early 2018, I had the major surgery. (8:24) But even before that surgery, just to kill that infection, it took several rounds.
Domino (8:30) They quadrupled the medicine, quadrupled the medicine. (8:34) Just my body was done.
Scott Benner (8:35) Oh my gosh. (8:37) So after the surgery I mean, you don't, like, just bounce back real quickly. (8:41) I had a small procedure yesterday that was nothing, and I came home and slept for five hours. (8:45) So after being ten years sick and having this major surgery to kinda clean things out, how long did it take you to recover from that?
Domino (8:54) It really was pretty quick. (8:57) I mean, from the extreme of where I was, it didn't take very much for me to start feeling better. (9:04) Okay. (9:04) So I I really had a little bit of a window of getting my life back. (9:12) I was able to exercise and eat differently, and so I really did have a short time in there where
Scott Benner (9:21) There's a little excitement and things were back on track.
Domino (9:24) Yeah. (9:25) And I got back on track and really did a one eighty. (9:30) And
Scott Benner (9:31) And then somebody comes along and yanks the rug out from me again.
Domino (9:34) Yeah. (9:34) Yeah. (9:35) And because it was slow, you know, they kept just writing it off as malabsorption or or the way my digestion was working. (9:46) And, you know, you're just weak or you're having difficulty digesting and then absorbing and different things. (9:53) So my symptoms, they were just attributing to that.
Scott Benner (9:57) Just nobody really knew, right, what was really happening to you? (10:00) Okay.
Domino (10:00) And it was slow. (10:02) The the shaky, you know, the sweating, all of the symptoms that come with Lowe's
Scott Benner (10:10) Mhmm.
Domino (10:10) It was sporadic. (10:12) And then towards the end of the before diagnosis, it was all day every day. (10:18) Seizures, passing out, you know, horrible.
Scott Benner (10:22) When did that start? (10:23) What year?
Domino (10:25) So it it started 2018, and it was almost six years until diagnosed.
Scott Benner (10:33) Oh my gosh. (10:35) Uh-huh. (10:35) Hey. (10:36) What did you do in a past life? (10:38) You kill a bunch of kids or something?
Scott Benner (10:39) What what do you what
Domino (10:41) No. (10:42) Actually, the first twenty years of my life, I was a preschool teacher.
Scott Benner (10:47) Oh my gosh.
Domino (10:48) It was early childhood.
Scott Benner (10:49) Oh, there you go, everybody. (10:51) There's no karma, and there's no Yeah. (10:52) Yeah. (10:53) Yeah. (10:53) So Right.
Scott Benner (10:54) My how about in your your extended family? (10:56) Do have brothers and sisters?
Domino (10:58) Yes. (10:59) I I'm one of 19.
Scott Benner (11:02) Holy hell. (11:03) Wait. (11:04) Wait. (11:04) Wait. (11:04) Wait.
Scott Benner (11:05) Stop. (11:05) Stop. (11:05) Stop. (11:06) Stop. (11:06) Stop.
Scott Benner (11:06) I didn't know we were gonna do this. (11:08) Wait. (11:08) You and your mom wait. (11:10) You you, your mom, and dad have 18 there are 18 other siblings, or your dad's been, like, banging all over the place? (11:18) What's going on exactly?
Domino (11:19) So I have I'm one of 11, and then we're all blood from from my birth parents.
Scott Benner (11:26) Mhmm.
Domino (11:26) They both did divorce and remarried multiple times, and so there's stepsiblings. (11:34) But 11 of us are blood siblings.
Scott Benner (11:36) Alright. (11:37) I just this is not important to our story, but I just wanna understand for myself. (11:40) How long were they married? (11:41) How long did it take them to make 11 babies?
Domino (11:44) Twenty years.
Scott Benner (11:45) Twenty years. (11:46) And then the pressure of having 20 children made them get divorced, do you think?
Domino (11:51) Well, yeah, there are multiple factors there, but yeah.
Scott Benner (11:54) I gotcha. (11:55) So they they man, they made it twenty years, made 11 kids. (11:58) I gotta be honest with you. (11:59) I go 11 kids twenty years. (12:01) Even if you try to stab me in my sleep, I'm gonna be like, it's okay.
Scott Benner (12:04) She deserves to try to stab me. (12:05) She's, like, she's been through a lot. (12:07) You you know? (12:09) Yeah. (12:10) If I was your mom, I'd be like, hey.
Scott Benner (12:11) He's a dick, but, like, yeah. (12:13) All the kids look the same. (12:14) Why not hang a little longer? (12:16) We're almost done.
Domino (12:17) Right.
Scott Benner (12:17) But no. (12:18) So they split up. (12:19) They make, what is that? (12:20) Eight more kids between them.
Domino (12:24) And those other kids were from previous marriages.
Scott Benner (12:27) Oh, okay. (12:28) Yeah. (12:28) A group, though.
Domino (12:30) Yes.
Scott Benner (12:31) Yep. (12:31) Now but this is good for my question, which is of all those kids, do any of them suffer with any illnesses?
Domino (12:38) Not any autoimmune or anything like this.
Scott Benner (12:42) Nothing like I mean, people have been sick, but it's nothing where I've been sick for ten years or anything like that.
Domino (12:47) Right.
Scott Benner (12:47) So we're really thinking that maybe from a surgery or something unknown in you, you contracted a festering kind of infection that couldn't be cleared up.
Domino (12:59) Correct.
Scott Benner (12:59) Okay. (13:00) And then they basically strip mined you to get it out of there. (13:04) That worked. (13:06) You start you felt better. (13:07) You were on your way to feeling better, and then before you knew it, you started getting dizzy having these problems and spent six years passing out.
Scott Benner (13:15) Now that's what I wanna know about. (13:16) Once it hit hard and full, what was your life like before they understood what was happening to you? (13:24) Why would you settle for changing your CGM every few weeks when you can have three hundred and sixty five days of reliable glucose data? (13:33) Today's episode is sponsored by the Eversense three sixty five. (13:37) It is the only CGM with a tiny sensor that lasts a full year sitting comfortably under your skin with no more frequent sensor changes and essentially no compression lows for one year.
Scott Benner (13:49) You'll get your CGM data in real time on your phone, smartwatch, Android, or iOS, even an Apple Watch. (13:58) Predictive high and low alerts let you know where your glucose is headed before it gets there, so there's no surprises, just confidence. (14:05) And you can instantly share that data with your health care provider or your family. (14:10) You're going to get one year of reliable data without all those sensor changes. (14:15) That's the Eversense three sixty five.
Scott Benner (14:17) Gentle on your skin, strong for your life, one sensor a year that gives you one less thing to worry about. (14:24) Head now to eversensecgm.com/juicebox to get started. (14:30) Let's talk about the Tandem Mobi insulin pump from today's sponsor, Tandem Diabetes Care. (14:35) Their newest algorithm, Control IQ Plus technology and the new Tandem Mobi pump offer you unique opportunities to have better control. (14:43) It's the only system with auto bolus that helps with missed meals and preventing hyperglycemia, the only system with a dedicated sleep setting, and the only system with off or on body wear options.
Scott Benner (14:56) Tandem Mobi gives you more discretion, freedom, and options for how to manage your diabetes. (15:02) This is their best algorithm ever, and they'd like you to check it out at tandemdiabetes.com/juicebox. (15:10) When you get to my link, you're going to see integrations with Dexcom sensors and a ton of other information that's gonna help you learn about Tandem's tiny pump that's big on control. (15:21) Tandemdiabetes.com/juicebox. (15:24) The Tandem Mobi system is available for people ages two and up who want an automated delivery system to help them sleep better, wake up in range, and address high blood sugars with auto bolus.
Domino (15:36) You know, until I got the diagnosis, I really just kept writing it off to this is my new anatomy. (15:47) This they're telling me it's malabsorption. (15:49) It's nutrition. (15:51) It's dumping syndrome. (15:53) It's and I don't blame them.
Domino (15:57) It's really hard because my labs, everything was terrific. (16:01) Okay. (16:03) And I was after I had a surgery, I started boxing, and that was my livelihood then. (16:12) I was just burning calories like crazy and fit and all that. (16:19) And I just thought, okay.
Domino (16:20) I'm feeling weak. (16:21) I need to sit down. (16:22) I need to step out, and just thought that was my new normal.
Scott Benner (16:27) I'm sorry, Domino. (16:28) You made a living boxing?
Domino (16:30) Yes.
Scott Benner (16:30) Oh my god. (16:31) Tell me more, please.
Domino (16:33) I've trained really hard, and I'm actually master boxing instructor and a master personal trainer.
Scott Benner (16:40) No kidding. (16:41) How about that? (16:42) How do you make money with that? (16:43) Is it like the roller derby?
Domino (16:47) So I'm an instructor. (16:49) So I I teach others how to how to defend themselves, how to how how to just use their body, give them confidence. (16:58) Yeah. (16:59) Self defense. (17:00) Women and teenage girls were my primary group.
Scott Benner (17:04) Mhmm.
Domino (17:05) And I did have some other groups with more elderly patients that were also Parkinson's patients, and boxing is phenomenal for that.
Scott Benner (17:14) No kidding. (17:15) How come?
Domino (17:16) Just the repetition and using those bodies you know, using every part of your body, but also even just the voice.
Scott Benner (17:26) Oh, no kidding.
Domino (17:27) And I've the most fascinating to me is the music. (17:33) If they can do that to music that's familiar, it I mean, it night and day.
Scott Benner (17:39) No. (17:39) But that's really that's really cool. (17:41) Oh, so you found something you really liked. (17:42) That's awesome. (17:43) But then Yeah.
Scott Benner (17:44) You're passing out. (17:45) And you just assume, like, this is just how my body works now. (17:48) I pass out sometimes.
Domino (17:50) Right.
Scott Benner (17:51) Did doctors understand? (17:52) Did you understand at that point that it was from low blood sugar, or did they not they didn't have it even that figured out? (17:58) No. (17:59) That took six years.
Domino (18:01) It took six years.
Scott Benner (18:02) Okay. (18:03) Can you recall the the moment when it got figured out and how how they got to it?
Domino (18:09) Actually, yes. (18:10) And I especially with my anniversary, hopefully, I don't get too emotional. (18:17) But bouncing around to doctor to doctor, and, you know, I I just was not getting anywhere. (18:24) I knew, you know, that something was missing. (18:28) Mhmm.
Domino (18:28) Something I should not have to live like this. (18:31) Yeah. (18:32) So I found a new doctor, went to him, and said, here's what's happening. (18:39) I know my number's great. (18:41) I promise I'm not crazy.
Domino (18:43) And he listened and said, when are these things happening? (18:47) When are you noticing these things? (18:51) And did a little bit of journaling, went back in to see him, and he said, okay. (18:56) Here's what we're gonna do. (18:59) You're gonna eat in your car.
Domino (19:01) I'm gonna have standing labs ready to go. (19:06) Have your husband or somebody there with you. (19:08) As soon as those symptoms come on, go straight in the lab, cut in line, and have them draw your blood.
Scott Benner (19:16) Okay.
Domino (19:18) And I was in the thirties, and everybody was scrambling. (19:23) We're gonna call an ambulance. (19:25) And I'm like, nope. (19:26) Nope. (19:26) Nope.
Scott Benner (19:27) Not before you draw my blood. (19:28) Yeah.
Domino (19:30) Yeah. (19:30) So, I mean, it was so quick, and they were like, oh my gosh. (19:34) So from there, it was a lot of testing and a lot of trial and error to get to the diagnosis.
Scott Benner (19:42) No kidding. (19:42) But that that moment is where it started to go your way again.
Domino (19:46) Right. (19:47) Yeah.
Scott Benner (19:47) But listen. (19:49) When they jeez. (19:51) You're describing 16. (19:54) How long ago was this, the diagnosis for the next a year ago, you're saying?
Domino (19:59) So it was about a year and a half ago
Scott Benner (20:02) About a year and a half ago.
Domino (20:03) Started seeing the endocrinologist. (20:05) Mhmm.
Scott Benner (20:05) Okay. (20:06) Okay. (20:06) So and how old are you today? (20:08) Did you say you were 50?
Domino (20:09) I'm 50.
Scott Benner (20:10) 50. (20:11) Yes. (20:11) So you're telling me that since you're 34, you've been struggling with health issues?
Domino (20:16) Probably better part of twenty years.
Scott Benner (20:19) My god.
Domino (20:20) Mhmm.
Scott Benner (20:21) What's that do to you?
Domino (20:23) Pisses you off.
Scott Benner (20:25) Were you surly when you didn't even know you were? (20:30) Do you know do you know any no?
Domino (20:32) No. (20:32) I don't think so. (20:34) You know, the first ten years before the first ten years with the infection, I was very deep in raising my children. (20:45) I've had my preschool at that open at that time.
Scott Benner (20:48) Mhmm.
Domino (20:49) So I was still working and trying to hold everything together and just say I had a lot to live for, had a lot to fight for, so I just did it.
Scott Benner (20:59) Pushed. (21:00) Yeah. (21:00) Hey. (21:00) The kids came before the infection or during?
Domino (21:03) They were before.
Scott Benner (21:05) Before.
Domino (21:05) So they were teenagers when when that happened.
Scott Benner (21:08) I see. (21:09) And you said you may have had a medical procedure that led to it. (21:11) Do you remember, like, what was that? (21:13) What could it have been?
Domino (21:14) Well, and that's the tricky thing. (21:16) Did the infection start first, which led to a couple different surgeries, or was it the infection post? (21:25) We don't know.
Scott Benner (21:26) Okay.
Domino (21:26) But, had partial hysterectomy and then gallbladder removal.
Scott Benner (21:33) Gallbladder removal. (21:34) And you you you live in a fairly, metropolitan area. (21:38) Is that right?
Domino (21:39) Oh, no. (21:40) I do not.
Scott Benner (21:41) You don't?
Domino (21:42) No. (21:42) I was in Wyoming for a good part of this. (21:45) Mhmm. (21:46) We did just move a year and a half ago to Colorado because my doctors are here.
Scott Benner (21:53) Tell people when you went in for your gallbladder surgery, they were working on a bison next door. (21:57) Is that correct? (21:58) Probably. (21:59) Probably. (22:00) Yeah.
Domino (22:00) You know? (22:01) And it's in the cafeteria when done.
Scott Benner (22:07) You know, when you bump into your doctor at the gas station, he's like, can look at you here. (22:11) You know your rural vet. (22:12) Like, yeah, just step behind the the pump. (22:14) We'll check it out real quick.
Domino (22:15) Get in the covered wagon. (22:16) I'll just pull up my front door to my saw.
Scott Benner (22:19) Was his name Doc Holliday? (22:21) It wasn't something like that, was it? (22:22) No. (22:23) No. (22:23) Okay.
Scott Benner (22:25) For those of you listening, I know Doc Holliday was not a doctor. (22:28) I just please, don't wanna get a note about that. (22:32) So, okay. (22:34) Wow. (22:35) Gosh.
Scott Benner (22:36) When you're recanting it, how does it make you feel talking about it right now?
Domino (22:40) You know, it was emotional this morning just with it being the one year. (22:45) I mean, I'm talking to my husband this morning. (22:49) Just think this time last year, I was in a eight hour surgery. (22:54) They were removing a feeding tube that I had been on for four hundred and twelve days and woke up. (23:02) No pancreas.
Domino (23:03) Most of my stomach gone. (23:05) Some of my intestines gone.
Scott Benner (23:07) Jeez.
Domino (23:07) And as a type three c.
Scott Benner (23:10) But if I'm wrong, you just stop me. (23:12) Okay?
Domino (23:13) Mhmm.
Scott Benner (23:14) Most people's onset of diabetes is a sad day where they get an illness. (23:19) Yours was a happy day because you got rid of sixteen or more years of struggling. (23:27) You traded it for something else, but I I I don't wanna put words in your mouth, but you're better off now than you were before. (23:33) Right?
Domino (23:34) I was hoping that would be the case.
Scott Benner (23:37) Oh, no. (23:38) So
Domino (23:38) Yeah. (23:39) There's
Scott Benner (23:39) Dominic Dominic, don't make me cry today. (23:41) Okay? (23:41) Alright.
Domino (23:42) I'm trying to not be a bummer. (23:43) I'm trying to be a
Scott Benner (23:44) real I'm trying I'm trying not to be a bummer, but it is my story. (23:49) Yeah. (23:50) I mean, we can stop in the middle and tell a story about a clown, like, in another twenty minutes or so, if that helps.
Domino (23:54) Sure.
Scott Benner (23:54) But but seriously, you were hoping it would be, but it wasn't?
Domino (23:58) There was no way around it. (24:00) I talked in length with my doctor, you know, about the repercussions of do I just wait it out? (24:09) Is this gonna get any better? (24:10) Is it eventually gonna have to come out? (24:13) Is my pancreas gonna come out?
Domino (24:15) And he said, yes. (24:16) It's gonna have to come out.
Scott Benner (24:18) They couldn't just ice cream ice cream scoop out a few cells or, like
Domino (24:23) no? (24:24) Well well, actually, so January, they did a partial removal of the pancreas. (24:32) They removed the tail of pancreas
Scott Benner (24:34) Mhmm.
Domino (24:35) And that was not successful.
Scott Benner (24:38) It fought back. (24:39) It was like Yes. (24:40) Yeah. (24:41) It was like, that's not gonna stop us. (24:43) Yeah.
Scott Benner (24:43) Yeah. (24:43) Yeah.
Domino (24:44) It it caught up. (24:46) So, yeah, January had the partial, and then December was the total.
Scott Benner (24:51) No kidding. (24:53) Well, so you were probably pretty hopeful on the partial. (24:55) Right? (24:55) Like, we'll just take away some of its ability, this will even out. (24:58) And then it just didn't it didn't change at all after the partial?
Domino (25:02) Slowed down for just a brief bit, but it quickly cut it. (25:05) Jeez.
Scott Benner (25:06) You you know, my biggest takeaway so far is the the cruelty of it for you. (25:11) Yeah. (25:12) Seriously. (25:13) Like, an infection that they can't clear out for ten years, that just seems silly in a modern age. (25:18) You know?
Scott Benner (25:19) And then you're like, yeah. (25:22) No. (25:22) I was there, Scott. (25:23) Thanks. (25:23) It was it was horrible.
Scott Benner (25:24) But, like, you know, that seems silly. (25:27) Then the surgery that, you know, sparks off something that's, you know, described here as a rare medical condition, which means that it's so incredibly unlikely that this would be your outcome, and yet it is. (25:38) And they do other things to try to help. (25:40) Like, feels like to me listening to your story, and I don't know if this is how it feels to you, but I'm asking. (25:45) It feels like you've been lifted up and dropped a lot of times.
Scott Benner (25:49) Does that make sense?
Domino (25:50) Absolutely.
Scott Benner (25:51) That visual makes sense to you?
Domino (25:53) I use the box saying, get knocked down and get back up. (25:57) Knocked down, back up, up.
Scott Benner (25:59) But you started thinking you weren't gonna get back up.
Domino (26:02) Absolutely.
Scott Benner (26:03) You did I hear you say earlier you put your will in order and things?
Domino (26:06) I did with that infection towards the end. (26:11) They were actually treating me for rheumatoid arthritis, misdiagnosed with that.
Scott Benner (26:17) Okay.
Domino (26:17) So a lot of the things they were doing to treat that was probably feeding that infection.
Scott Benner (26:23) You were you had RA symptoms, but it was an infection?
Domino (26:29) I did have RA symptoms, and I think it was just all the inflammation and toxic inside my body.
Scott Benner (26:38) Elbows, knees, wrists, hands, like that?
Domino (26:42) Everything.
Scott Benner (26:43) Muscle weight?
Domino (26:44) Send you pictures and
Scott Benner (26:45) You had swelling. (26:46) I
Domino (26:47) was actually having blisters and rashes externally on my skin. (26:52) I had to wear a full oxygen mask. (26:56) I couldn't just do the cannula because any perfume, smoke, anything
Scott Benner (27:03) Everything was getting yeah. (27:05) Because your body was so busy fighting off that infection, it didn't have the ability to do anything else, I guess. (27:11) No. (27:11) Oh my
Domino (27:12) god. (27:12) Every foreign thing, it was fighting, and I had to be super aware of germs and sickness because it would knock me out.
Scott Benner (27:22) You you lose time with your kids over this and your husband?
Domino (27:25) No. (27:25) I unwisely probably pushed more than I should have, but I feel like it was present. (27:34) And
Scott Benner (27:36) No. (27:37) I hear what you're saying.
Domino (27:38) Fought through a lot of pain and a lot of discomfort to make that a priority.
Scott Benner (27:44) Mhmm. (27:45) If they clear up the infection, do your joints just get better? (27:49) Yes. (27:50) Okay.
Domino (27:50) There's damage with all of that, though, that I'll never ever, which is one thing. (27:57) I just loved boxing so much. (28:00) I was able to get really strong and build my muscles to help carry the weight off my joints.
Scott Benner (28:06) Yeah. (28:07) I'll be damned. (28:08) That's just something. (28:09) Alright. (28:10) Let's shift gears for half a second, then we'll get back to it.
Scott Benner (28:12) Because I'm gonna Yeah. (28:13) I'm gonna jump out of this, and we'll jump back in to the pancreatectomy in a little bit. (28:18) Mhmm. (28:18) So tell people why I'm so awesome. (28:21) Because, you seem to know, and I don't know.
Scott Benner (28:23) I wanna find out.
Domino (28:25) I do, and I probably will get emotional.
Scott Benner (28:27) Really? (28:28) Well, this isn't even gonna be fun. (28:29) Okay. (28:29) Alright. (28:29) Hold on.
Domino (28:31) And I don't wanna, like, bounce around too much.
Scott Benner (28:33) Go
Domino (28:33) ahead. (28:33) But so a year ago, I had the pancreas technique. (28:37) A month later, they quickly moved me to the pump. (28:41) I'm on Omnipod five. (28:43) Mhmm.
Domino (28:43) Thank goodness my doctor was amazing, and I credit him for saving my life.
Scott Benner (28:49) Yeah.
Domino (28:50) But two days after I started my pump, my doctor had a stroke.
Scott Benner (28:58) Oh my goodness. (28:59) You're endocrinologist? (29:00) Yes. (29:02) Jeez.
Domino (29:02) And he's survived, but I didn't know this. (29:06) I didn't know this actually probably till, like, three weeks ago. (29:09) All of a sudden, he was not there. (29:11) I was left with no doctor and two days on the pump, not knowing what I was doing, could not get in with any other doctors. (29:23) I finally did get in with one, and I immediately knew this is not a good fit.
Scott Benner (29:30) Oh, okay.
Domino (29:32) So it took till July 31. (29:37) So from December to July 31 to get in with someone else.
Scott Benner (29:44) So So you had a pump, no doctor for six months.
Domino (29:47) Right. (29:48) And they there was hope that he was gonna come back come back. (29:53) So I kept kind of hanging in there thinking I was gonna get back in for an appointment.
Scott Benner (29:58) Oh.
Domino (29:59) And it was not happening, my the seizures were bad from hypos, passing out again. (30:09) Could not figure it out.
Scott Benner (30:10) Oh, wait, Domino. (30:11) You were passing out again now from artificial in insulin from man made?
Domino (30:16) Yeah. (30:17) Well, just from low blood sugars. (30:19) Because you not struggle with high. (30:21) I struggle with lows.
Scott Benner (30:22) Okay. (30:23) And so you're on a pump now. (30:24) Now you're free of your of your rogue pancreas and oh, rogue pancreas. (30:30) That's a good episode title. (30:31) And you're you're free of your rogue pancreas.
Scott Benner (30:33) You're using Omnipod five, but you're still getting low. (30:37) Yes. (30:38) Okay. (30:38) And you have no one to go talk to because your doctor had a stroke.
Domino (30:43) Right. (30:43) I I no clue what I'm doing.
Scott Benner (30:47) Hey. (30:47) Does anybody else in your sphere get sick? (30:50) Is it possible are you doing this to them? (30:52) Is what I'm asking. (30:53) No.
Scott Benner (30:53) Is it possible you have so much bad luck that it's soaking out of you and getting on to other people? (30:58) No. (30:59) No. (30:59) No.
Domino (31:00) I might have stressed him out. (31:01) That's in fact, it's terrible to say, but I told my husband, oh my god. (31:05) I killed him.
Scott Benner (31:06) Because heard your story?
Domino (31:07) My stuff. (31:08) I killed him.
Scott Benner (31:08) He heard your story, and he was like, it's too much to handle. (31:11) Yeah. (31:11) The oh my gosh. (31:12) That's so but you were left in the lurch. (31:14) No.
Scott Benner (31:15) Of course. (31:15) No. (31:15) I understand. (31:16) Wow. (31:17) So
Domino (31:17) I got desperate and said, I'm gonna start trying to figure this out. (31:23) And I found you No.
Scott Benner (31:25) But no. (31:26) I'm laughing. (31:26) I'm laughing because I'm like, yeah. (31:28) Desperate women. (31:29) They're my bread and butter.
Scott Benner (31:30) Yeah. (31:30) There we go. (31:31) Yeah. (31:33) No. (31:33) But but without the joking, I do think that desperate people I I don't mean that are my bread and butter.
Scott Benner (31:40) I do think that's how you I think that's how a reasonable person goes. (31:43) I guess I'll turn on a podcast and listen to what they have to say. (31:46) Absolutely. (31:46) Yeah. (31:47) You have to get into a situation where you're like, I have no other recourse now.
Domino (31:50) Right. (31:50) I have to
Scott Benner (31:51) try something because it's not a sensible thing for an adult to do.
Domino (31:54) Well, at that point, I thought, I'm gonna die if I do not figure this out. (32:00) These seizures are killing me. (32:02) I'd I'm missing something.
Scott Benner (32:04) Yeah.
Domino (32:04) And no one's helping me.
Scott Benner (32:08) What were you missing?
Domino (32:09) You know, even during the diabetic education for the Omnipod and stuff before, I'm just so little information and so little trust, I think, in me being able to handle. (32:24) And it was a lot. (32:26) I mean, I went from having all of my nutrition just from feeding tube.
Scott Benner (32:33) Mhmm.
Domino (32:34) So I had to not only learn to eat by mouth again. (32:38) So I think they were just worried about overloading me
Scott Benner (32:41) Yeah.
Domino (32:42) Or, yeah, lack of being able to handle it. (32:46) So, yeah, it was just like I felt like do or die.
Scott Benner (32:50) Yeah. (32:51) And then, I mean, what'd you do? (32:53) How did you find the podcast? (32:54) Were you just, like, literally searching, or did somebody put you in touch with it?
Domino (32:58) I just was googling. (32:59) I was just trying to figure out, okay. (33:01) Omnipod settings, you know, just nutrition just anything. (33:05) Anything. (33:05) I was plugging in so many things, and juice box kept coming up.
Domino (33:10) So I actually think I started in the Facebook group in May. (33:17) Mhmm. (33:17) I think I found you in May and was just reading along, but I needed a place I could ask questions too
Scott Benner (33:25) Okay.
Domino (33:25) And try to is there anybody out there?
Scott Benner (33:27) Yeah. (33:28) Yeah. (33:28) I'm lost. (33:28) I don't know what to do.
Domino (33:29) And Yeah.
Scott Benner (33:30) I listen. (33:31) I saw you first. (33:33) I mean, this is this is not uncommon. (33:36) Right? (33:36) But, like, every, I don't know, every couple of months, somebody's account sticks out to me more than others.
Scott Benner (33:43) And you it because there's so many, like, I I mean, if you're all listening, I love you. (33:48) But, like, I don't know who, like, more than, like, 30 of you are. (33:51) And so at any one time. (33:54) But yours your account just started popping up. (33:57) You were just so exuberant about it.
Scott Benner (33:58) Like, you know, there's that even an automated post that goes up, every time a 150 new people join their group, an automated post comes out saying, like, hey. (34:08) Welcome to the group. (34:09) It lists all the people, and it gives you some, you know, stuff to try. (34:12) It's a, you know, it's simple way to hopefully get some of the information to people. (34:17) And you're on, like, every one of them.
Scott Benner (34:18) Like, hey. (34:19) How are you? (34:19) And I'm like, and you kinda came out of nowhere. (34:21) And when I see that normally, I think, oh, this must be a person that the content really helped because you're, like, exuberant about, like, trying for other people to find it. (34:31) Am I reading that correctly?
Domino (34:33) Absolutely.
Scott Benner (34:34) Okay. (34:34) Okay.
Domino (34:35) And I really believe in what you're doing.
Scott Benner (34:38) Thank
Domino (34:38) you. (34:39) And I do not put my fave on stuff. (34:41) I do don't even respond or interact if I don't believe in it.
Scott Benner (34:47) So your level of engagement based on who you are and how you, you know, purport yourself and and and handle yourself online, like, is uncommon for you to speak up like this?
Domino (34:57) Yes. (34:58) Especially in community groups like that.
Scott Benner (34:59) Okay. (35:00) It does you're not completely comfortable with it?
Domino (35:04) You know, just have to be really into it.
Scott Benner (35:08) Sure.
Domino (35:09) And I guess this is a different level also. (35:13) This is you know, some of the other groups are just hobbies or entertainment.
Scott Benner (35:19) Right. (35:19) Right. (35:19) Yeah.
Domino (35:19) Yeah. (35:20) This is life.
Scott Benner (35:21) It's hard hard to get excited about how you made a a stuffed animal into a lamp. (35:25) You know what I mean? (35:26) Right. (35:26) Yeah. (35:26) Right.
Scott Benner (35:27) Right. (35:27) Like, I have a I ain't gonna waste time telling this to you. (35:30) But this this feels like I I see. (35:32) It feels distasteful for me to say it. (35:35) But, like, you feel like the podcast and the ecosystem around it saved you.
Domino (35:40) Absolutely.
Scott Benner (35:41) Okay. (35:41) And you wanna make sure other people know that it's there? (35:44) Yes. (35:44) Thank you. (35:45) I appreciate that.
Domino (35:46) And I just love your your thoughtful approach. (35:50) It's so sensible sensible and balanced.
Scott Benner (35:54) Thank you.
Domino (35:55) I truly I just knew right away there was a good energy, and the more I've listened, I just really relate and connect.
Scott Benner (36:04) Can you hold on a second? (36:06) I'll get my family up here. (36:07) That's Sure. (36:07) I'll tell you those those, they don't listen at all. (36:10) They don't.
Scott Benner (36:11) Look at me like I'm half out of my mind. (36:14) The other night, were telling me I was doing something wrong. (36:16) I was like, I don't even know what you're talking about. (36:21) Well, I first of all, I'm I'm super happy that you found it and that it was helpful for you. (36:26) Like, that's why it's there.
Scott Benner (36:27) It's there, hopefully, to find a person like you or somebody else that could use it. (36:31) Absolutely. (36:32) To know that you're intersecting with it the way that I intend it, that's special for me because I I think there'd be, you know, if we had a if we had a I don't know. (36:44) If we if we had a somebody here who's known me for thirty years, they would say that that explanation of me that you just gave, they'd be like, I don't know that person, like, twenty years ago or thirty years ago. (36:54) I wasn't like this forever.
Scott Benner (36:55) It just I don't know. (36:57) I started making the podcast because I thought I thought, well, I I have all this stuff we figured out. (37:03) I would like to tell somebody else about it. (37:04) I don't want people to struggle needlessly. (37:06) And then it's obviously grown beyond my anybody's expectations.
Scott Benner (37:12) And, you know, to hear you say this today, I mean, how many years removed from my first blog post? (37:19) Almost twenty years. (37:21) It makes me feel like that along the way, when there were bumps in the road where there were decisions to be made about direction, tone, content, whatever, I've made a million decisions between then and now. (37:33) It makes me feel like I've made a lot of them well. (37:36) Maybe I'm sure not all of them, but, like, enough that it it's still working and and finding people like you modern day is really exciting for me.
Scott Benner (37:44) Because four years ago, if you would have asked me, I would have said, oh, the podcast won't be here four years from now. (37:48) Like, that's, like, that's silly. (37:50) Like, a podcast won't last that long. (37:52) And then to hear you talk about it really reminds me of something I did, I don't know, a couple of weeks ago. (38:00) I don't know where the idea came from, but I put up an Instagram post.
Scott Benner (38:02) It was a review of the podcast from 2015 and a review of the podcast from 2025. (38:09) And they're very taken very randomly. (38:13) Like, I just picked them by the dates. (38:15) And if you read them, they read the same. (38:19) And that kind of consistency, I feel proud about that.
Scott Benner (38:22) You know what I mean? (38:23) Like Absolutely. (38:24) Yeah. (38:24) The the takeaway has modernized, but yet not changed for people's outcomes. (38:31) I you know, we could sit here for three hours and try to philosophize about why that is.
Scott Benner (38:35) I don't know. (38:36) I just all I can tell you is that when decisions come in front of me, I I generally pick ones that go well. (38:43) And it's been my whole life. (38:44) I don't even know why. (38:45) It it's, you know, everything, really.
Scott Benner (38:48) Like, I I started in a hole as a as a broke person, and I still like, every time I had an opportunity to make a decision, it usually led to something better. (38:57) So I I don't think it's a skill even. (38:59) I, you know, I used to call it common sense, but it almost seems insulting. (39:04) So I don't know. (39:06) I just have a knack for zigging and zagging the right way at the right time.
Domino (39:11) Well, it's it's terrific.
Scott Benner (39:14) Thank you. (39:14) I'm so happy for you.
Domino (39:16) I've found something valuable in every episode, and I've listened to that. (39:21) I can't get get them all in fast enough, but there's value in everyone. (39:26) And I think, you know, I mean, even kinda joking about, come and tell my family about that. (39:31) It just depends on what you're lacking, I think, what you need. (39:36) If how much is writing on things?
Domino (39:39) Yep. (39:39) You know? (39:40) That's filling a need that is for me, I mean, it was life or death, and I'm not being dramatic.
Scott Benner (39:46) No. (39:46) No. (39:46) It doesn't sound like I don't listen. (39:48) People don't don't willy nilly put their put their affairs in order. (39:52) That's not a Right.
Scott Benner (39:53) Yeah. (39:53) That's not a decision you jump to lightly. (39:55) And and you've also been through, by my count, like, three serious medical situations. (40:03) And Yes. (40:03) You know, each one of them didn't seem to have an answer.
Scott Benner (40:07) Yeah. (40:07) And when they did have an answer, the you know, what came next was not pleasant. (40:12) But how do you describe where your life is right now? (40:14) Now you're a year beyond that surgery, found the podcast, you know, how to take care of your insulin better now. (40:20) Like, are you where you want to be?
Domino (40:23) I'm not where I want to be be yet. (40:26) Okay. (40:26) I don't know if it's just as good as it gets, but I would not absolutely not be aware I am now Mhmm. (40:34) If I didn't start listening to the podcast.
Scott Benner (40:36) What do you think is left to to work on?
Domino (40:40) I don't know if there's a black and white answer with all the complications that I have. (40:47) The variables are are really tricky.
Scott Benner (40:50) Domino, are you getting that echo again?
Domino (40:52) Not too bad.
Scott Benner (40:53) No. (40:53) Is it messing with you? (40:55) No. (40:55) No. (40:56) You're okay?
Scott Benner (40:56) Okay. (40:56) Alright. (40:57) I just wanted to make sure that you are
Domino (40:58) Do we need to switch something?
Scott Benner (40:59) I don't I like, part of me was like, should we should you drop out and jump back in? (41:03) Because I didn't hear it before, but I was hearing it just now when you were talking. (41:07) Okay. (41:08) I'm sorry. (41:08) I didn't
Domino (41:09) No worries.
Scott Benner (41:09) No. (41:09) No. (41:10) Go ahead. (41:11) I'm sorry. (41:11) Do you know where you are?
Domino (41:12) Yep. (41:13) I think the variables are what are hard for me with digestion, with just my whole anatomy, physiology. (41:23) There's just too many too many butts all the time.
Scott Benner (41:30) Well, Tom, remind us again of what your physiology is. (41:33) You have what all has been taken out of there?
Domino (41:37) So no gallbladder, no uterus, which is kinda beside the point. (41:44) Majority of my stomach is gone. (41:46) The duodenum, which is the top part of the intestines, is gone, and also the pancreas.
Scott Benner (41:54) Yeah. (41:55) And they took that stuff just looking for infection to take out. (41:58) Right?
Domino (41:59) They took more out also with the pancreas removal just as far as being able to cut paste back where things would work.
Scott Benner (42:11) Jeez. (42:12) So your body works so much more differently now, but it makes the insulin usage more difficult. (42:18) Yes. (42:19) Yeah. (42:19) What are your outcomes like right now?
Scott Benner (42:21) Only by the way, only six months into finding the podcast and a year into having type three c. (42:27) So, like but where are you at? (42:28) Are your is your variability more variable than you want it to be? (42:33) Is your a one c higher or lower than you want it to be? (42:36) What what's your current situation?
Domino (42:38) My a one c is too low. (42:40) It's 5.3. (42:42) They would like to see that come up, and that's a false a one c in two parts just because of the significant lows.
Scott Benner (42:54) Mhmm.
Domino (42:55) And that a one c can be affected. (43:00) I have macrocytosis, which is a fast turnover of your red red blood cells. (43:07) Mhmm. (43:07) So then there's a younger red blood population and less glycation.
Scott Benner (43:12) Yep.
Domino (43:12) So that can be false also.
Scott Benner (43:16) So it it it's low, but it could be falsely low, but you're having a lot of extended blood sugar lows, so nobody really knows how to gauge what that number really means for you.
Domino (43:25) Right.
Scott Benner (43:26) Yeah.
Domino (43:26) And the frustration for me is which even the struggle with diagnosis, you know, my labs and numbers, everything looks good even though it wasn't. (43:36) And even now, you know, they're you're ninety five percent in range. (43:43) You're you know, this is great. (43:46) This is great. (43:47) But I think, no.
Domino (43:49) You know, when I have two or three hours stretch in the night of a sticky low and seizures. (43:57) And, frequently, that's not
Scott Benner (44:00) How low?
Domino (44:00) Optimal.
Scott Benner (44:01) Yeah. (44:01) No. (44:01) No. (44:02) Not at all. (44:02) How low?
Domino (44:04) I regularly go below the 40 on my Dexcom where it just drops low and with finger six, I've seen in the twenties.
Scott Benner (44:14) And your target on the Omnipod five, we do you keep it at one thirty?
Domino (44:19) I have multiple. (44:21) They want that seventy one eighty, but I do have the one thirty. (44:27) I have 90 to try to catch it, and that's the hard thing with the varying not only digestion, gastric emptying, but the absorption.
Scott Benner (44:40) Mhmm.
Domino (44:40) I have very difficult time absorbing. (44:45) And then also, I'm having early kidney strain from malnutrition. (44:52) So the kidneys are working a little bit harder to flush the insulin out of the potty. (44:58) So sometimes it stays longer, so there's a delayed hypoglycemia.
Scott Benner (45:03) Oh, domino. (45:04) I'm sorry.
Domino (45:05) So That's
Scott Benner (45:06) a lot that's a lot to have to worry about and deal with over and over again. (45:10) Is it controllable at all, based on the foods you eat? (45:16) Like, are there certain needs the foods that you can use to make it work better for you, or is it variable no matter what you do?
Domino (45:22) It's variable, and that's I just had my appointment two weeks ago. (45:30) The malnutrition, malabsorption, the I'm having some nerve effects and brain effects from the seizures. (45:40) I
Scott Benner (45:42) imagine. (45:42) So what are we gonna do? (45:43) Like, wait. (45:44) You're married still. (45:45) Right?
Scott Benner (45:45) That guy, he didn't take off?
Domino (45:47) Yes. (45:47) Yeah.
Scott Benner (45:49) Because because you're a lot, Domino. (45:51) I so, like, I can see if, like
Domino (45:54) I'm a lot.
Scott Benner (45:56) I mean that in a very lovely way. (46:00) Listen. (46:01) Maybe I don't it's not about you. (46:02) It's boys. (46:03) You know what I mean?
Domino (46:03) Right.
Scott Benner (46:05) So good. (46:05) You had a good guy. (46:06) He's hanging with you. (46:07) Like, what would what would since we can't control the the way the food goes through you, like, what would stop these lows? (46:17) Like, have you set up guardrails?
Scott Benner (46:20) Do you get up at the middle of the night and test? (46:21) Does are there anything you've tried that that showing any promise? (46:25) Can we enlist him in helping? (46:27) What can we do?
Domino (46:29) He helps. (46:31) Trouble is sometimes they're just sticky lows. (46:36) They take a long time to get up, and I don't know if the digestion is slower at that time.
Scott Benner (46:42) Mhmm.
Domino (46:44) And, yeah, just absorption, digestion.
Scott Benner (46:47) What do you do for Lowe's when you get low? (46:49) You drink a juice? (46:50) You do what do you do?
Domino (46:52) I primarily been using glucose gel and glucose tabs just to get the most bang.
Scott Benner (46:56) Yeah. (46:57) In your mouth. (46:57) Right? (46:58) Like, trying to absorb through your cheeks. (46:59) Okay.
Domino (47:00) Well, and a lot of times, I'm losing consciousness and having seizures, so the gel is easiest for my husband to rub in the cheek.
Scott Benner (47:09) There's no chance another organ's making insulin inside of that body somewhere. (47:12) Right? (47:13) No. (47:13) No. (47:14) You don't have anything left to give away, but I mean No.
Scott Benner (47:16) Yeah. (47:17) Okay.
Domino (47:17) Well, in a little side note,
Scott Benner (47:19) the
Domino (47:19) glucose, switched to that because there has been a
Scott Benner (47:23) couple
Domino (47:23) times where I've gotten up and they, you know, have gummy bears or something trying to bring it up, and then I lose consciousness. (47:33) And we're both asleep, and I'll wake up with gummy bears in my mouth still. (47:37) So Yeah. (47:38) We don't like liquid.
Scott Benner (47:40) Oh, what the least you can laugh. (47:42) Listen. (47:43) Well,
Domino (47:44) I'm laughing because I told my husband, and he didn't think it was funny. (47:47) And I said, you know, if I die in my sleep choking on gummy bears, please just say I've died in a bear attack. (47:54) Just give me some dignity, please. (47:57) Don't tell him.
Scott Benner (47:59) Oh, Domino, I didn't
Domino (48:00) asphyxiated on gummy bears.
Scott Benner (48:02) I didn't think you were gonna knock me off rogue pancreas, but then there you did it. (48:06) That was awesome.
Domino (48:07) I'm trying to be so behaved. (48:09) I have the most inappropriate dark humor, and I swear like a zipper.
Scott Benner (48:14) No. (48:14) You're fine. (48:15) Please curse away. (48:16) I already cursed once. (48:17) Rob's now listening.
Scott Benner (48:18) Also, Rob, a 100% sure, we're calling this bear attack, so keep that going. (48:29) This episode was too good to cut anything out of, but too long to make just one episode. (48:34) So this is part one. (48:36) Make sure you go find part two right now. (48:37) It's gonna be the next episode in your feed.
Scott Benner (48:42) The podcast you just enjoyed was sponsored by Tandem Diabetes Care. (48:46) Learn more about Tandem's newest automated insulin delivery system, Tandem Mobi with Control IQ plus technology at tandemdiabetes.com/juicebox. (48:56) There are links in the show notes and links at juiceboxpodcast.com. (49:02) Are you tired of getting a rash from your CGM adhesive? (49:05) Give the Eversense three sixty five a try.
Scott Benner (49:08) Eversense c g m dot com slash juice box. (49:11) Beautiful silicone that they use. (49:13) It changes every day. (49:14) Keeps it fresh. (49:15) Not only that, you only have to change the sensor once a year.
Scott Benner (49:19) So, I mean, that's better. (49:23) Okay. (49:23) Well, here we are at the end of the episode. (49:25) You're still with me? (49:26) Thank you.
Scott Benner (49:27) I really do appreciate that. (49:28) What else could you do for me? (49:30) Why don't you tell a friend about the show or leave a five star review? (49:34) Maybe you could make sure you're following or subscribed in your podcast app, go to YouTube and follow me, or Instagram, TikTok. (49:43) Oh, gosh.
Scott Benner (49:44) Here's one. (49:45) Make sure you're following the podcast in the private Facebook group as well as the public Facebook page. (49:51) You don't wanna miss please, do you not know about the private group? (49:54) You have to join the private group. (49:56) As of this recording, it has 74,000 members.
Scott Benner (49:59) They're active talking about diabetes. (50:02) Whatever you need to know, there's a conversation happening in there right now. (50:06) And I'm there all the time. (50:07) Tag me. (50:08) I'll say hi.
Scott Benner (50:10) Hey. (50:10) I'm dropping in to tell you about a small change being made to the Juice Cruise twenty twenty six schedule. (50:15) This adjustment was made by Celebrity Cruise Lines, not by me. (50:18) Anyway, we're still going out on the Celebrity Beyond cruise ship, which is awesome. (50:22) Check out the walkthrough video at juiceboxpodcast.com/juicecruise.
Scott Benner (50:27) The ship is awesome. (50:29) Still a seven night cruise. (50:31) It still leaves out of Miami on June 21. (50:34) Actually, most of this is the same. (50:35) We leave Miami June 21, head to Coco Cay in The Bahamas, but then we're going to San Juan, Puerto Rico instead of Saint Thomas.
Scott Benner (50:43) After that, Bastille, I think I'm saying that wrong, Saint Kitts And Nevis. (50:47) This place is gorgeous. (50:49) Google it. (50:50) I mean, you're probably gonna have to go to my link to get the correct spelling because my pronunciation is so bad. (50:54) But once you get the Saint Kitts and you Google it, you're gonna and see a photo that says to you, oh, I wanna go there.
Scott Benner (51:01) Come meet other people living with type one diabetes from caregivers to children to adults. (51:07) Last year, we had a 100 people on our cruise, and it was fabulous. (51:12) You can see pictures to get at my link juiceboxpodcast.com/juicecruise. (51:17) You can see those pictures from last year there. (51:19) The link also gives you an opportunity to register for the cruise or to contact Suzanne from Cruise Planners.
Scott Benner (51:25) She takes care of all the logistics. (51:27) I'm just excited that I might see you there. (51:30) It's a beautiful event for families, for singles, a wonderful opportunity to meet people, swap stories, make friendships, and learn. (51:39) My grand rounds series was designed by listeners to tell doctors what they need, and it also helps you to understand what to ask for. (51:47) There's a mental wellness series that addresses the emotional side of diabetes and practical ways to stay balanced.
Scott Benner (51:53) And when we talk about GLP medications, well, we'll break down what they are, how they may help you, and if they fit into your diabetes management plan. (52:01) What do these three things have in common? (52:03) They're all available at juiceboxpodcast.com up in the menu. (52:07) I know it can be hard to find these things in a podcast app, so we've collected them all for you at juiceboxpodcast.com. (52:14) If you have a podcast and you need a fantastic editor, you want Rob from Wrong Way Recording.
Scott Benner (52:20) Listen. (52:21) Truth be told, I'm, like, 20% smarter when Rob edits me. (52:25) He takes out all the, like, gaps of time and when I go, and stuff like that. (52:30) And it just I don't know, man. (52:31) Like, I listen back, and I'm like, why do I sound smarter?
Scott Benner (52:34) And then I remember because I did one smart thing. (52:37) I hired Rob at wrongwayrecording.com.
Please support the sponsors
The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here. Recent donations were used to pay for podcast hosting fees. Thank you to all who have sent 5, 10 and 20 dollars!
