#1890 Wiener Roast
A Canadian mom whose son's type 1 was caught at a celiac follow-up, a husband running a DIY loop, and Scott playing detective on her iron, thyroid, and brain fog.
Wiener Roast
Cold Open & Sponsors 0:00
Friends, we're all back together for the next episode of the juice box podcast. Welcome. K. Hold on a second. Okay.
Just introduce yourself real quick so we can keep talking.
Okay. Hi. I'm Lana, wife and mother to two, one being type one, and celiac. Yeah.
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Find it at juiceboxpodcast.com up in the menu, in the featured tab of the private Facebook group, or go into the audio app you're listening in right now and search for juice box podcast bold beginnings. JuiceBox is one word. JuiceBox podcast bold beginnings. This series is perfect for newly diagnosed people. This episode is sponsored by AbleNow, tax advantaged savings accounts for eligible individuals with disabilities.
If you or your child lives with diabetes, you may qualify for an ABLE account because of ongoing medical needs, and many people in the diabetes community do. With ABLE Now, you can save for future expenses without affecting eligibility for certain disability benefits such as Medicaid. Learn more and check your eligibility @ablenow.com. You spell that ablenow.com. Today's episode of the juice box podcast is sponsored by the Kontoor Next Gen blood glucose meter.
This is the meter that my daughter has on her person right now. It is incredibly accurate and waiting for you at kontoornext.com/juicebox. I'm having an on body vibe alert. This episode of the juice box podcast is sponsored by Eversense three sixty five, the only one year wear CGM. That's one insertion and one CGM a year.
One CGM, one year. Not every ten or fourteen days. Ever since cgm.com/juicebox. If if all of you could have heard the last eighteen minutes of Lana trying to get set up here, the state would come and take her children from her immediately. And they would say
It's not my fault. I swear.
They would say she she she displays no ability to do the simplest things on her cell phone. I think we have to come take those kids. So let's talk people out of that belief. Okay? Don't you tell me.
Okay. To be fair to be fair, we had to do something different because of the AAPS system that we use because it blocks something. I don't know. So
I don't even care. It's fantastic. We should have recorded the last eighteen minutes and then ended the podcast. It would have been perfect. People would have been like like, they would have been like a little nugget that made them feel better about themselves for the day.
Tech Trouble & the Husband Who Runs the Loop 3:28
They would have spent the whole day going, you know what? It's not going perfectly, but imagine how it's going for Lana right now. Does your whole life go this way, or is this just a technology thing, or what's going on?
This is definitely a technology thing.
Okay. Okay. Well, that'll be interesting when we get to the insulin pump stuff. Tell me how
Oh, yeah. My husband has to do this.
Your husband has to do this
stuff. Yeah.
My wife says to me, she's like, it's you do it because you do it. It's not because I can't. And I go, well, okay.
No. I wouldn't say that. He he set up the AAPS all his own, and I was watching behind. And I'm like, I have no idea how you're doing this right now. And he's like, you could do it.
I'm like, seriously? I don't think so.
Is that
what you're Not at all.
You weren't thinking, oh, I can never leave this guy now. Damn it. Oh my
god. I was I was Yeah. He we're we're stuck together now.
I mean, like, he knows all this. God. What else does he know? What else is happening behind my back that I don't realize is happening? So tell me about how old are your children?
Gabriel, he is eight. He's the one with celiac and type one, and then Olive is seven.
Olive. Very nice. And how long have you guys been married?
Actually, ten years this July.
Oh, actually, you just did that math in your head just now, didn't you? You were like, oh my god. I think it's been ten years. Does that feel like a long time to be?
I just ten years? Yeah. I mean, I haven't had relationships last really more than a year or two. So yeah.
What the like, because that's how you're measuring it. How old are you?
I'm 41.
41. So when you were 31, you were like, this is not gonna work, but I'll marry this guy and see what happens anyway. Is that and then Pretty much. And then two years later, your kid can't eat bread and gets diabetes, or what happened there?
Gabriel’s Celiac Diagnosis 5:26
Yeah. So well, it wasn't two years. It was a little longer than that. But, yeah, he was okay. Some of the story about a celiac diagnosis was kinda like he was losing weight, but we didn't really notice it as much.
It was more so my mom and my family were over there one time, and they were just kinda like, he seems to be a little bit thinner. Like, they just kinda mentioned it to me, not in front of him. But yeah. So I thought, hey. There's been other weird things going on.
Like, we'd go for walks, and he'd be complaining about how tired he was. And John, like, my husband, had to carry him back a few times. And I'm like, this is so weird. Like, what is going on? So we finally I got him in with our my family doctor, and she was kinda like, okay.
All these symptoms kind of could sound like celiac, but let's get his blood work done. So we went and had his blood work done and, like, came back, like, crazy high. Like, I think it's, like, an IgA number is what they Told you. Okay.
Do you remember what it was?
Anyways yeah, it was over 600. So I remember the doctor saying, like, if it's over 20, he's potentially celiac. And we're like, oh, hey. Well, he's definitely celiac. So we actually didn't even have to do the the invasive biopsy.
They're just kinda like, we can definitely just just diagnose him with such a high number like that.
Hey. Are you Canadian?
Was kind of but Are you Canadian? Sorry. I am.
Oh. As I told you earlier, Able Now is sponsoring this episode. Able Now, of course, tax advantaged Able accounts for eligible individuals with disabilities. If you or your child lives with diabetes, you may qualify for an Able account because of ongoing medical needs. Many people in the diabetes community do.
With ABLE now, you can save for future expenses without affecting eligibility for certain disability benefits such as Medicaid. And thanks to updates to federal law, ABLE accounts are now available to more people than ever before. That means more individuals and families can use ABLE now to save and invest. Funds in an ABLE now account can be used for a wide range of everyday needs, including education, transportation, health care, assistive technology, and more. There's no enrollment fee, and you can open an Able Now account with a small initial contribution and build from there.
Learn more and check your eligibility @ablenow.com. That's ablenow.com, ablenow.com. I didn't realize. I wouldn't have made funny about the technology thing if I knew you were Canadian. You can't help it.
I didn't realize that. I'm so sorry. I take the whole thing back.
Why do Canadians have, like
You're doing the best you Lana, you're doing the best you can. That's all. You live in a frozen tundra. I didn't know what
you can do.
Right? Oh my gosh. I mean, jeez. With all the polar bears and everything, how are you even existing? So okay.
We still have snow. That's what I'm saying. You're at a disadvantage. I didn't realize it. I I didn't hear it till I heard you say you said something, and I was like, oh, she's Canadian.
I could hear it in your voice.
Really? Like, my accent or something?
Immediately. Yeah. I I knew five minutes ago. I just didn't wanna break up your story.
Oh, okay.
I forget what you said, but you used the And I was like, oh, I didn't know she was Canadian. That's what I thought in my head. Yeah. That's right. That's nice.
But now I can't blame you for all this stuff. Like, you guys are prob you probably like a crank generator powering your house and everything. Right?
I mean, you're pretty close.
I'm pretty close. If something goes wrong, the mounties come or how how is it policed exactly?
Well, I mean, there is RCMP, Royal Canadian Mounted Police.
Oh my god. You're bringing me back to the RCMP Twitter feed that is so fan I I don't wanna start talking about it again, but it's just it's just a list of stabbings, basically, that are happening. It's like Yeah.
There is actually a lot.
The the RCMP was was called out to a bar in, like, you know, Saskatchewan where three men stabbed each other for no like, it's just it this is so funny. Anyway, if you guys can find it, it's hilarious. Not not not funny that people get stabbed. It's just you get No. You get my point.
No. Yeah. Yes. So definitely celiac. How old is he when that's happening?
That was when he was five. He was diagnosed at five.
Okay.
So, yeah, there was so we went in, had the whole, like, okay. You gotta eat gluten free now and change out your I don't know. Like, I guess we have two toasters now, one for gluten and one for non gluten. Mhmm. So we do that.
And so then we had to go they told us to go back for more blood work in about three to four months because they wanted to see if going gluten free would obviously bring down his numbers. Yeah. So, yeah, we went in we were supposed to go three months, and I think we waited, like, four or five months, which ended up being probably a I don't know. Why can't I think of the word?
Oh, I don't know, but I'm I'm delighted listening to you try to figure it out. A
Some brain fog.
A misstep, a a lucky thing because
A lucky thing because?
I feel like it's what you ever see those books where you get to choose your own story? Yeah. That's what I feel like I'm doing right now.
I love those books.
Yeah. Yeah. Yeah. We used to have them on records. Do ever you have, like, a storybook that had a record with it?
You'd play like a you're not
old Yep.
For that. Yeah. You
you yeah. I was I'm just old enough, I feel.
Yeah. Oh, anyway, I For those. We have a
record player now. But, anyways Look.
Caught at the Celiac Follow-Up 11:16
May I guess? It was lucky because when you went back, he already had diabetes symptoms, and they caught it then, but he wouldn't have had it two months before if he would have gone back in three months.
Precisely. Yes.
I've been doing this for so long. I already know your story.
Okay. Well, go ahead.
Well, okay. Hold on a second. Your husband couldn't believe it. He said, no. No way.
And you were like, oh my god. He's got diabetes. I called my mom, and no. I'm just gonna go.
No. It wasn't it. But I can remember exactly where we were and everything. It was just we had just actually had a wiener roast because he was diagnosed so, yeah, he was diagnosed September 18. And so we were sitting around.
It was on a Sunday, diagnosed, and we got we went in for blood work. That's the day we went in for blood work to follow-up with celiac. They called us right back that same day saying, like, okay. Your son definitely has type one diabetes. And I remember sitting there being like, okay.
I know this is not good, but I didn't know how bad it was.
Okay. Because Yeah.
You hear that, and you just I just had no idea, like, what this all entailed. I just knew it wasn't good news.
Well, talk about not good news. People who really love the podcast just now thought, why did she say wiener roast in the first ten minutes? That could have been the title if she would have just saved that for a little longer. What a great what a great episode to pop up in your feed tomorrow, wiener roast.
Is that the name of the
This might be the it could be no. You said Weiner. I'm and I'm thinking maybe that's a great title for your episode, but I don't know. I wish people who really listen, I like the titles that come up later because I want you to keep listening to figure out why the hell it's called Weiner Roast. But if you give it
up in the
first yeah. You give it up in the first eight minutes, it's it's too easy. Don't worry. I have high high confidence you're gonna say something else. Probably.
I can't wait till we find out, like, you know, the celiac came, so we just started eating whale blubber. I don't know.
High protein.
I'm sorry. I don't know what's wrong. I had a long day. Actually, I do know what's wrong, but that's not the point.
Okay. I feel like the whole miss, like, technology thing totally threw me off. I felt so prepared, and now I'm just like
Oh, no. No. It's Lana, listen. I had to leave the house like an adult this morning very early, and I'm discombobulated. I have been living a pampered life for so long.
I just want everybody to know that I'm aware of that. That my my son and I had to go into a meeting this morning. We had to be there at nine. It was like an hour drive. So I'm, like, popping out of bed at, like, you know, 06:45, getting in the shower.
I'm like, what? Do people do this? I'm like, just like, whatever. This is horrible. I said to my wife on the phone, I was like, can you imagine if I had to do this every day?
She's like she's like, I do. I was like, I was like, oh, you you set your life up wrong. I was like, this is terrible. So by the middle of the afternoon, I was like sleepy. Was like, what's happening to me?
Oh, yeah. That happens to me too because I'm at home as well. Yeah.
Oh, and yeah. Anyway, it's my fault. I'm discombobulated today, but that that's neither here nor there. I'll I'll take my bad reviews to heart and just get to the point. So there's so much chitchat.
Thanks. It's a podcast.
Yeah.
It's not a Ted
Gong. Yeah.
Yeah. Yeah. Like, I'm not supposed to just stand up and blurt everything out, and then it ends, and you go, right on. But nevertheless.
Well, my husband was trying to tell me how you know, just think of it as like a fireside chat.
Like, oh, yeah.
I should turn our fireplace on.
He's right. And it's all you're doing is you're just sitting and talking to people, and how it comes out is how it comes out. So Yeah. Okay. So he's got celiac.
Thrown to the Wolves 14:58
Now he's got type one. You're not really sure what all that means. What's the the process of education like? And what kind of Yes. What what's the start you get with technology or insulin, etcetera?
So yeah. They're telling me that. I think it was the endo August I called. And they're like, is he okay? Because I think his number was 35, which is I don't know what that is in
other talking off that.
600. I think it's, like, 6 or 7, 800 probably.
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So yeah. And he's like the doctor is like, is he okay? I'm like, yeah. Just had a Lira's. He's running around.
He seems fine. They're like, okay. Well, I guess if you're okay with bringing him in tomorrow morning, then we could just do that. I was like, sure. Like, they didn't seem too concerned.
And I was like, is there anything that I should or should not do? And like, well, just don't, like, give him pop or juice or anything sweet. I was like, noted. Okay.
Okay.
So went went to bed normal. I don't know. Like, didn't really know what to be, you know, like, worried about yet. And so went in the next morning, and so that's when we started with the education. So there's, like, there's a peds hospital, which they were pretty pretty good.
Like, it I like how it was just, like, this is his number. He's type one. It was just that was basically how he was diagnosed and just like threw us into the wolves, you know.
Yeah. By the way, a 35 is is 631 for people.
Okay.
Yeah. Using different measurements, just so you know. That is Mhmm. So how long do you think how how almost said how long I almost said how long do you think he was afflicted? But I don't know where that came from since it's not a movie from the thirties.
But, like, how long do you think it had been going on?
Well, I think we caught it pretty quick because his his a one c was 7.8.
Okay.
And at his celiac, like, back, like, four or five months prior, his a one c was normal. Like, it was, like, 4.8 or something, I think, I wanna say.
But they
have really from, like, April to September.
He's probably, like, small bodied at that point. Right? He probably doesn't weigh too much.
No. He was he's very thin. So well, that was a thing. So it was thin from celiac. Then he started kinda feeling better, it seemed.
He wasn't so I don't know. He was just so irritable and just so not himself because he was seriously the most easygoing Mhmm. Human being, like, you'd ever meet. So, yeah, he would just, like, get so angry and just not like not like him. That kinda went away, and then it kinda started up again.
And just like their classic looking back now, drinking lots, going to the bathroom more at night Mhmm. And, I don't know, just the usual. Those are the two things I noticed the most. And I think he was starting to get quite, like, irritable again, being really grouchy and not being himself and just, like
But if it wasn't for the celiac, those aren't enough to make you go to the doctor. Right?
Mhmm. Yeah. Exactly.
Yeah. Yeah.
So, like, honestly, it was just our going in for our blood work for his celiac, and that was how we yeah. I don't even know. So we definitely escaped the whole Gary DKA stories, which we're so thankful for.
Yeah. Of course. So then what do they do? I it depends on what I should say province. Right?
But it depends on what part of Canada you're in about how they start you. So what was the management style getting set up?
So yeah. We went in that morning, 8AM, and I feel like a lot of
it is such a blur.
I do remember sitting there and being like they're telling us how to like, for food. So it was, like, counting carbs and, like, okay. So if he's gonna have some rice, then he'll put this out. And we should want to figure out, like, how much read the labels and how much rice he'll be having or any whatever. All the food.
And I just remember everything was coming at me. And suddenly when they were telling me about how everything he eats needs to be accounted for, I just lost it and just started, like, bawling. Yeah. Like, okay. This this is what I was wondering about when I was like, this is bad, but I don't know how bad, you know, until Until you get it and then
Yeah. And the idea of having to just keep track of so many things and measure medication every time, it hits you all at once.
Yeah. It did. Yeah. So it was so it was that. And then I think, I don't even remember.
I don't even think we had, like, a meal there yet. Oh, it is such a blur. That was trying to think about it.
No. It's it's super interesting. You you your recollection is is cloudy for sure. Like, and and is it that way about other things, or is it just this?
I feel like it has gotten more so like that with the lack of sleep through this whole entire
Uh-huh.
I don't know. It it played a big part in, I feel like, my brain fog and not being able to remember things so well, and, like, words don't come to me as good as they used to. And I don't know. It's crazy. Like, my friends even have noticed that too.
Brain Fog, Sleep & Two Years of MDI 22:53
How how how long has it been now, Anna? Like, three, four years?
It will be me four years, September.
Okay. And you're not Yeah. You're not sleeping well?
Better now that we are on a pump.
Okay.
We did MDI though for, like, two years. And Aaron was always like, why are you doing MDI? Like, how do you just?
And why were you? Hold on a second. I'm gonna This doesn't happen often. Give me one second, Lana. Yeah.
Arden Arden, I'm making the podcast. What's going on?
Okay. Well, I I need you for a second. Mom's old part is on file, not her new one, I don't think. So can you just check to make sure that I have enough to pay for this on my
I'll okay. I'll make sure right now. Okay? Yep. Bye.
Sorry. Hold on everybody Okay. While I take care of some apparently, financial issues by moving some money around. Arden is getting her hair done at the moment. And I guess she's trying to check out, and they're like, this card doesn't work.
Yeah.
See here. Sorry.
No worries.
We'll get back to you in just a second. But the people that hate the fluff are gonna hate the hell out of this. And my bank's making me put in a code so I can log in. That's taking time.
Oh, banking is another problem with me.
Lada. You're awesome. Hold on a second. Turn off this reminder for now. Let's see.
Transfer. A little more Scott's money going to somebody else. That's okay. Part of it here. She's also just texting She's texting me now.
She's like, also, it looks like my card expires next month. I'm like, oh, okay. Well, we'll just worry about all that right now. Hold on a second. And now, of course, I have no idea what she did because when she left there, I was like, so what are you getting done?
She was like, oh, you'll see when I get home. And I'm like, oh, okay. Oh. So Yeah. Yeah.
Yeah. I don't know if there's like there could be color in here. There could be a cut in here. I don't exactly know what it is I'm transferring money
Base tattoo.
Oh my gosh. That would be terrible. Hold on a second. Let me tell her the money's in the account. Okay.
Looks like it's taken care of.
Oh, good.
Yeah. Awesome. Imagine technology. Ten years ago, I I would have been like, I have to go now and take and take Arden, you know, money so she can get out of the hairdresser without
I would probably have I probably would have still had to do that. I'm like, okay. Hold on. Well, yeah. Arrive there and
get cash. You're like, I think I could do this, but my phone's never gonna let me. During this setup, Lana kept going, why is this happening to me? I'm like, it's not really happening to you. You just don't understand the details of what's going on.
Sorry. Sorry. Sorry. Sorry. So but but so you said the first two years were MDI.
Why It Took Two Years to Pump 25:55
Yeah. Why did you and you switched over to a pump. What pump did you get?
Omnipod Dash because we had full intentions on going to, like, AAPS because we have Androids.
Okay. And what was I gonna say there? Okay. How why did it take you two years to do it? What not that that's a long time.
Just what was the process?
It is. Well, we had been doing okay because we we were kinda doing the lifestyle just because it felt much easier, like, obviously, with his celiac. And then we're just finding recipes, and I was kinda like, oh, this is keto. I'm like, okay. Well well, let's just try that.
And so it had been going okay. So at school, we would pack, like, lower carb meals, and it just wasn't very difficult to take care of. So he would just get he would get his needle at school, and, like, the EA would do it. They're called, like, educator assistants
Okay.
Here. We don't we don't have school nurses.
I
know. So yeah. And at home, it just seemed to be working out. Like, then he didn't want anything else on him. Like, CGM was enough for him.
And yeah. I don't know. I just felt also intimidated by, you know, more technology.
Yeah. No. I hear you. And But what made the so then what made the change? You just
learned learned more? Because yeah. I think so. And also, the oh, wait a minute. The g seven
Mhmm.
Was starting to work better. So because we were having so many troubles with it. And I don't know. It just started kind of working a little bit better for him.
Okay.
So we decided to try a pump because then we knew because we knew that, like, obviously, the pump goes by what the CGM's numbers are.
Okay.
So, yeah, we're all kinda just ready for it. And I was getting I was so done with the needles at night because that was probably, like, our biggest the biggest hurdle. Hurdle.
Autoimmune, Adoption & a Hashimoto’s Hunch 28:06
Hey. Let's pivot for half a second. Do have other autoimmune stuff in your family, your mom your side or your husband's side?
Well, my husband's side, yes. He his grandpa on his mom's side had MS, and his cousin on that side also has type one diabetes.
Okay. And how about on your side? Does your mom have a thyroid problem?
Well, I'm adopted, so I don't know a whole lot about that. I just know through k. So backstory. Go ahead, please. Through the adoption, we were obviously give my parents were given some papers.
And, oh my gosh, I feel like I am so nervous right now
for something. Don't be nervous. First of all, Lana, I'm adopted too. I don't know if you know that or
Yes. I did know that, actually.
And and I'm I'm sitting here thinking, like, I wonder if you maybe don't have, like, Hashimoto's and you don't know it or something like that. Because, like Me? Yeah. You. Because you've and the the brain fog's for real.
Right? Yes. Is there anything else going on? Is your hair falling out? Have you gained or lost a lot of weight that you can't figure out why?
Well, I've gained weight, and I kind of I guess I am kind of, like, I was losing hair worse before, but I feel like there's also a reason for all of
that. Yeah. I think that reason might be called Hashimoto's. Hold on a second. So, like, do you okay.
Wait. Wait. Wait. Wait. Hold on.
Everybody a lot.
Everybody calm down for a second. Are you fatigued?
I mean, yes. But okay. I have endometriosis, which also has a lot of those same
Okay. Okay. And just brain fog. Do have any cold intolerance?
Not really.
Weight gain? Yes. Hair loss?
Yes. Yes.
Joint pain?
I feel like I have answers for those. They're not what?
You have joint pain? Nope. Okay. Feel weak?
No.
Alright. Depressed, sad, anything like that? Mood all over the place?
Sometimes.
Uh-huh. I'm sorry for this last one. Any sexual dysfunction? No. Okay.
Well, you Not
since the whole endometriosis thing was figured out.
You got that all? Oh, Well, how'd you figure that out?
Well, I had been having quite a bit of pain kind of in my, like, ovary areas.
Right.
And also so also thought maybe I was potentially, like, gluten intolerant or even celiac, but I just never got tested for celiac.
Okay.
So I go in because I had so much pain. I went to the ER, and it was so bad on my one, like, my right side. And they were feeling around on there, and they'd said they could kinda feel like a bump. And they're like, oh, what could potentially be like endometriosis? So they got me in for a ultrasound.
And, yeah, I guess I could see it on there. Like, they did the invasive ultrasound and then also the one, like, outwardly.
Mhmm.
And that's kinda how they found it. And then I went in for surgery and had some cysts removed.
Interesting. Yeah.
Mhmm. So it so I had that. And then
That's recently? Pain
what? Is that recently? Yeah. Like, two years ago?
Yeah. For boys listening, when she says invasive ultrasound, she means giant dildo with a camera on it just so you all know what your ladies are going through. Yeah. Yeah. Yeah.
That's exactly it. Yeah. Yeah. No. I I've I've heard the stories.
So I haven't been there, but I've heard the stories. And I've seen the face afterwards, by the way. Yep. Yeah. I've seen the I've seen the the, oh, okay.
Well, that happened. Yeah. Look I
mean, after having kids, I feel like nothing
That doesn't matter anymore.
Nothing is that scary anymore.
You think back to when you were 18, you're like, oh, that was so cute of maybe. I'm like, oh, no. Don't look. Yeah. But but okay.
So you had Oh, yeah. So you had endometriosis. So, I mean, you still do. Right? Like, so
Yes. It doesn't go away. Yeah. It's crazy
what it is. Yeah. No. I I know of a fair amount of like, everything you just described, going to the hospital, pain on the right side, they're like, oh, it could be your what do they do? They do they say, first, it could be your appendix, and it's not your appendix.
They say, it might be your gallbladder, and it's not your gallbladder. And then they do the thing, and then they go in and pop out a couple little cysts. You're like, oh my god. The pain's gone. That's crazy.
And and the pain's insane. Right?
The pain is excruciating. And so it's obviously worse when, like, when you're on your period, ovulating. And so I don't know how much TMI. But so yeah. So I was still having a lot of pain, a lot of bleeding.
Hysterectomy, Fibroids & Low Iron 33:17
And so I actually went back in telling them that, and they did more ultrasound. And they found that another one had now grown, and, like, they ended up actually having to get a hysterectomy as well.
Oh gosh. Did they do a full, or would they take the the
They did a like, they took just the uterus. They left my ovaries because they didn't wanna put me into, like, pre
Pre pre menopause. Yeah.
Yeah. Exactly.
Oh, did that help?
Yes. Definitely has. Awesome.
That's good. I And even that I'm sorry. I I don't think I'm you know, I'm just gonna you know what mean? Sometimes I think of something. I'm like, I don't think I should say that.
But my wife has, like, a fibroid inside of her uterus.
And I had that too.
Oh, awesome. And the fibroid is growing a friend. And at this point now, like, you can almost feel it, like, through her stomach. So Oh, wow. She's going in two days for a surgical consult.
I'm pretty sure they're gonna do the same thing to her.
Yeah. Because well, what my what my doctor said is he could either go in there and, like, essentially file it down or and, like, maybe the bleeding wouldn't be so bad and maybe your pain wouldn't be so bad. But I was just like, honestly, just get rid of this uterus. Just take it.
It's horrible thing. So What what are there any downsides to anything you've found?
I mean, obviously, I can't have children anymore.
What? I
was already done with that.
I was gonna say, thanks, captain obvious. I meant other stuff. You and if anyone's listening right now and they just learned that, they're like, oh, she can't have a baby now because they took the uterus out. If that just happened to you, I'm so sorry for you. But but but otherwise, Okay.
So, yeah, there's no, like, other, like I don't know. You didn't grow a horn or a mustache or anything like that. Lana. Lana, are you gone? Shut off her audio.
This happened earlier when we were setting up. She'll figure it out in a second. You're back. There you go.
Here I am.
That's all. I love it. Any any anything weird going on or you're just generally happy you did it? She's gone again. Lana, I can't hear.
Did I actually Yeah. You're back now. Yep. Oh, what the heck?
I know. I think it might be the question. I'll ask it again and see if your voice goes away. Were there any other unwanted side effects after this?
No other unwanted side effects
Mhmm.
At all. Okay. Yeah. Obviously, I had to outweigh what I like, when I was researching, like, to do it or not to do it. And I don't even remember what the things are that could potentially happen because I haven't had to worry about this.
So k. Good to good. And I like, I had to get another sister moved anyway. So I was like, they were gonna go in there anyways. So I was like, why not, you know
Take care of business.
Take that while you're in there.
What what was it minimally invasive? Did they go through, like, they open
My belly button. They go through your belly button.
What was the recovery like?
Well, for the hysterectomy, it was, like, six to eight weeks where you can't, like, lift or do anything. I was kind of, like, probably in bed for about a week. Obviously, you're supposed to, like, get up and move around and stuff, but, yeah, I think it was about a week.
Wasn't bad after that. And you just don't lift anything. Yeah. My wife's not lifting anything anyway, so we're fine.
No. Yeah. Yeah. So so it was kinda like during that time, feel is when I kinda put on a weight. So Okay.
I feel like there's reasons to why certain things have been going on, and it is not hashing modus.
Well, maybe it's not. I I wouldn't say it could be a it could be a lot of different things. But, I mean, there that's a fair amount of, like, issues going on for you, though.
Mhmm. You know? Must feel like
You don't forget to take care of yourself is what I'm saying, really.
No. Yeah. Exactly. And I feel like that's kind of this year is finally where I'm like, you know what? I'm gonna do a little bit more for myself.
And because this I can't have type one diabetes be bringing me down.
Well, it's good. Yeah. I mean, first of all, like, I'm not gonna say something, like, trite, like, you have to put on your mask before somebody else's. But, obviously, you need to be okay too. And, you know, the worse it gets for you, the worse it's gonna get for everybody.
You just Yeah. You're just gonna turn into one of those moms yelling at people at the McDonald's. You know what I mean? And there's you don't want that.
So No. Yeah. No. Yeah.
No. No. Want I wanna be a happy person. But there's there'd be nothing wrong with going to an endocrinologist and saying, you know, my son has celiac. He has type one diabetes.
You know, I have endometriosis. Here here's what's going on. Still, like, why don't we just do some blood work and see where we're at? I'd love a full iron panel. I'd love make sure you're not in need make sure you're not
in And yeah. So I did actually have to go and do all that before surgery for my hysterectomy, and I was a very iron
Deficient. Deficient. What'd what'd they do for that?
I actually did get the transfusion while I was in the hospital right after my surgery.
Did they give you enough? No. They really gotta juice you up for it to really work.
Oh, wait.
Do you remember
Oh, they did.
Do you remember what your baritone level was?
There's no way that
all Did you look up?
I'm gonna be able to look all this up even talking with you, but I can't now because then I then I go away.
Because the way you're using your phone. Yeah.
Yeah. But they were it was low.
Yeah.
They that was very low. So, yeah, they were able to do that for me while I was in the hospital, which was awesome because then I didn't have to go back or pay for it.
How many how many did they give you?
I don't know. I don't even know how many they gave me. They just said
What? Did he do it one time, or did he do it multiple times
over a couple weeks? Was just one time, like, after. And I was there for, like, I don't know how long did it take. Two hours?
Yeah. Well, I would tell you that, like, I mean, I've gone through this myself and usually, it's multiple infusions to get you back up to where you're supposed to be. And they usually give you one, wait a week, do it again. So my thing would
be Oh, yeah. That couldn't happen.
Yeah. My thing would be go get those labs run again. Because your you go brain fog, fatigue, weight gain, hair loss, that could be anemia. Right? Yeah.
So, like, go so I'd go back and say, hey. Listen. I was low before. They gave me some, but only once. I still have a lot of these symptoms.
I wonder if, you know, maybe I don't need it still. And because I think that I mean, I've had people on, doctors on, who say that they want your firetin to be, like, at a minimum 70 at a for a woman your age. If you're if you're walking around at ten, twenty, thirty, a lot of doctors will tell you that's okay, but I really it isn't. It it leads to all the things you're talking about.
Yeah. Yeah. Yeah. I knew I do need to go up for follow-up blood work.
Good. And it's Canada. I mean, you have to hurry because you're not dying, so they're not gonna help you for, like, nine months. So
Hey. To be fair, I've actually had pretty good I know and you hear about it, like, everywhere here where it's just awful healthcare and stuff. And to be fair, I actually everything that has kinda happened to me and my family, it's been dealt with very well. Like, I can't actually complain about it.
Cool. What province are you in?
In Saskatchewan. Okay.
Well, they there's only three people there, so there's not much of a line. They're they're just like, oh, you know who's coming early? Lana. And they go, oh, yeah. Who?
I
don't sound like that, do I?
No. I'm just teasing him. Of course not. Not at all. But I've just heard different stories.
There are people in some provinces that are they'll wait nine months or something that's not life threatening.
Oh, yeah. Yeah. It's I mean, okay. So it's funny. Got on to this podcast so quickly to do an interview because I was just like, you know what?
Last minute, let's do it. I had my hysterectomy last minute. They called me on a Wednesday. Like, wanna come in on Tuesday and have your hysterectomy? I was like,
yeah. Sure. Why not?
Because I I was on a waiting list, and I had no idea when I was gonna get in. So I guess that would be the thing where I was gonna have to deal with that for much longer had I not gotten in on a cancellation.
Yeah.
But it was it worked. So
Well, don't tell people how you got on the podcast because it'll make them mad. Because every once in a bay basically, what happens is every once in a while, I go look at my calendar. I sometimes I have to move things around. I have to travel next week. I have to travel next week for work.
Can I say what I'm doing? Probably not. But I'm going to do something next week that I wasn't expecting to have to do. So I had to move some things around and make some space on my calendar. And then I realized that today, I had that meeting this morning that I was telling you about.
And so I moved the person off of today to another day. There was somebody scheduled for today and I moved them. Oh. But then when you came on, that all of a sudden, I forgot to block the day off, so it looked open. And so you didn't you didn't wait in line like everybody else because today's not supposed to be here.
But once you were emailing with me, I thought, oh, we'll just work it out where I'll do it later in the day. And yeah. Yeah. So don't tell the people who waited six months to come on the podcast.
Oh, well, I won't. Everything just seems to work out how it should. Right? Yeah. Keep your
Living With a DIY Loop (AAPS) 43:05
head down. You deserve it. Trust me. So so so he jumps your son jumps to Android APS. And Yeah.
Something your husband sets up, a DIY algorithm for people who don't know. Right? And what's your experience been like with it?
It's been I don't know. It's been okay. I feel like he's so sensitive to insulin that sometimes, like okay. For, like, DIA, you can the highest you can go is nine hours or what like, whatever that means, I guess. I don't even know.
It's, how long the insulin is in you for. Right?
Duration of ins duration of insulin acting.
Yeah. Yep. So nine hours is the highest we can go, and sometimes I feel like that's not even high enough. But and with his okay. So another thing we're struggling with that night is when he is laying on it and he has a false low, it turns off the insulin because it thinks it's going low.
Yeah. And then you roll him over and he goes back up, and then it's like, oh, let's give him insulin. It's like, no. I don't want you to give him insulin. He's just going back up to his normal Okay.
From what he was. Does that make him low later?
Yeah. Because it's blasting with insulin when you didn't need it. Well So we always have to instead of just like well, then we just have to put a temp target on it. Like, okay. Don't send him insulin because he's literally just going back up to where he normally should have been.
Mhmm. Okay. So it sees the rise?
Like little things. Yeah. It sees a rise, and then it's like, oh, it needs insulin because it's going high.
Even if the rise doesn't go over top of the correction number? Because, like, are you
telling me
are you telling me, like like, his blood sugar is nice and stable and normal, but he rolls over, gets a compression low, it cuts off his basal for a while. He looks low, you roll him over, the blood sugar pops back up, and it starts the bolus.
Yeah. Exactly. If we didn't put on a temp target.
Okay.
So if you forget, then it's like Then you get that way around that. Like, I think you could probably I think you'd have to make your own. Like, that's where we we're kinda like, well, I don't know how to do that.
Make your own.
Like, it's gotta be
What? Make your own
build it?
Like Make your own
build. I think you can build that kinda thing on AAPS, but I don't know how.
Oh. And
that does my husband.
I see. So some sort of, like, an add on to the algorithm that that does a thing you'd like it to do in a certain situation.
Yeah. Exactly. Okay. So he doesn't use a whole lot of insulin. Like, what what the max fill is, like, 90.
And after three days of changing his pump, we usually have, like, sometimes 50 45 to 50 units still left.
Okay. Alright. So he's not using a ton of insulin then?
No. He's not.
No. And because you're eating more low carb and not using a lot of that kinda, like, celiac friendly stuff that can be higher in carb.
Well, I mean, we still kind of try to do low ish carb. Like, say, supper, we'll have we usually have a meat and some, like, vegetables as opposed to before we'd probably, like, load in a ton of I don't know. We'd have, like, either rice or potatoes Mhmm. Or, you know, like, that empty carb Kinda keeping away from But
keeping away from starches and stuff like that now.
Yeah. Okay. So that has definitely helped. So usually, our mindset now is, like, a protein and a vegetable for supper. Mhmm.
Not all the time. Like, we still have spaghetti. Like, last time we had chicken Alfredo. Like, we haven't we were at the first year. We were kinda not having any of that.
And then it just kind of I don't know. It just got too difficult, and he wasn't gaining weight. Like, he wasn't eating enough protein to make up for the lack of carbs or whatever.
Okay.
So we're kinda like, well, we're just gonna introduce carbs back in again. Okay. And meaning, like, spaghetti or, you know, noodles
and stuff. What's this a one c at?
I think the last one we checked, it was six point zero.
Oh my gosh. Sounds like you're doing pretty well.
Yeah. I mean, I'm so hard on myself. I feel like I'm I wanted it to be I thought it would be in the fives. You were
disappointed with the six?
Yeah. Sort of.
No. That that I
feel like we've been doing so much I feel like we were doing so much work, and then, like, hear that it wasn't, like, 5.8 or 5.7. I was just like, oh, like, how do you actually get into the fives?
Well, you just keep your blood sugar lower from where, like, stable times. It's it's but but but, I mean, first of all, he's he's not that old. Right? No. He's has to deal with celiac.
Does so is there something about celiac that changes the a one c? Is there accuracy? I'm trying to think if I remember something about that. Oh, sorry.
I don't really know about that. Like, obviously, if he were to have like, if he were to get gluten, I'm sure he would like, that would affect some way somehow.
Well, okay. So it's like
Because then
I'm looking it up because I I remember something, but I didn't remember the whole thing. Like, so celiac doesn't change like the a one c test, but the idea is that untreated celiac could cause malabsorption that could create an iron deficiency and anemia, and then that might impact the a one c. So Right. But he's not he's you guys are sounds like you're pretty careful with the celiac.
Yeah. Like, we went in last time for his celiac. We got that checked too, and he's back down to, like, a a regular like, if someone were not celiac number now.
The the the test. The Yeah. IgA test. Right?
Yeah. Well, that's good news.
I mean, you have two toasters now, so you might as well utilize them. Was that as an as an adult, you mean, taking the health part out of her for a second, is there a moment where you look at the countertop and there's two toasters there and you think, oh my god. We have two toasters. What happened to us?
Oh, yeah. Yeah. Absolutely. We actually finally were just able to move it over to, like we moved into a new house, and the, like, pantry area didn't have any, like, plug ins. And so we're like, what the heck?
We can't put our two toasters in the pantry. Yay. We had to have them out on on the counter.
Two toasters?
Anyways, we
What a waste of your adulthood. Yeah. Just my goodness. How does he hand how does he handle it? Go you mean what?
Go ahead. I'm sorry. I cut you off.
No. I was just gonna say, like, we have more than just two toasters. It's like two of so many things.
Two Toasters & Splitting the Caregiving 50:08
Two bread knives, two places where you keep stuff. Like, you're keeping things completely separate?
Well, kind of. Like, do we have one kind of cabinet for him, and then the other side is the gluten stuff?
Okay.
But so, I mean, if you had, like, a small kitchen, I just feel like having all this double of things would be Annoying.
Overwhelming or maybe contaminate itself. Right? So is that is that does he have, like, flare ups from contaminations, or is it not that
Honestly, no. I feel like he wouldn't he has gotten sick maybe once or twice, and we thought, oh, well, maybe it was gluten. And I think both times is when we'd gone out for a meal. Mhmm. And so I remember him, like, the next day kinda felt like he had to throw up and stuff.
And, well, you know how when a child has to throw up after dosing him, it's never fun.
Just like, oh, good. All the insulin's in there, but under the food.
Oh my gosh. Exactly.
So it so the whole thing is, like, I mean, you're are you a stay at home, did you say? You stay with the kids during the day, or you you leave and go to work to she's gone.
Yeah. So I'm definitely the the primary, like, caregiver when it comes to especially diabetes. So I'm always the one in, like, talking with the school or messaging back and forth with him Yeah. Which he's gotten really good at now.
That's awesome. You guys are just kinda texting about his diabetes back and forth?
Yeah. Yeah. So he has a, like, a phone and a watch. So just recently, he's been doing so much better with, okay. It looks like you're going well.
You should
have a
tab, and then he'll give the thumbs up. Or if his alarm goes off, he'll be like, okay. I'm having a tab because my alarm went off.
Nice. That's good.
And that's just recent.
Yeah. That's good. I mean, it'll keep growing. You know what I mean? Like, things will
get Yeah.
Easier, better. He'll understand more. You'll probably rest more. That'll be good too. And then things will seem different in in the light of day, I would imagine.
Husband knows a lot of knows anything about it or is mainly stays into the like the app building side of this?
No. No. No. He I mean, he does do the app part side of it, but, no, he's definitely involved. And I've gone away and, like, for a weekend or whatever, if I go out, he's there's no problem.
I'm not like, okay. Are you gonna be able to handle this? Yeah. I mean, I do feel like I know more about it and, obviously, because I am more involved while he's at work. Mhmm.
But, no, there it's definitely both of us Okay. Doing it. That's awesome.
Where Does This Go? Family, Loss & Adoption 52:49
Yep. Yeah. Where do you think this all goes? So, like, when you I mean, do you have the brain space for that to think about, like, how is your son gonna grow with this? What are expectations for him look like short term, long term?
Or is it more of a one day at a time thing for you?
I feel like I've kind of taken it more so a one day at a time. Just because before, like, the first year was I would say it was pretty dark. Okay. It was kind of always thinking about what's gonna happen, what could happen. I feel like I haven't had the best information given to me about other type ones in my life.
Uh-huh. Like, one of my friends, she actually passed away from type one diabetes, and my birth mom almost passed away from it. And my husband's cousin has quite a few medical issues from it too. So
What? So wait.
You Kinda like
Yeah. That's upsetting. But your birth mom had type one? Has?
Yeah. Okay.
And and and and someone on your husband's side has it too. Mhmm. Yep. Oh, okay. Yeah.
It's a perfect little mix here. Did you guys Yeah. Did you guys meet on on autoimmune Tinder? Where how'd you
I mean, you could minus the word autoimmune, but we did meet on Tinder.
Oh oh, god. So the kid was the kid was I don't wanna say doomed, but he was definitely gonna like, something was gonna pop up. And this makes me think more about good.
It's so funny. Well, okay. Not funny, but I feel like until his diagnosis, I really didn't have a whole lot of information or even know much about autoimmune Uh-huh. Because it wasn't really in my adoptive family that I knew of.
Yeah.
So I had read like I was saying oh, yeah. Here's what I was saying before in the papers that we had gotten with like, through the adoption, it had a little bit of description of her, and it said she had gestational diabetes while she was pregnant with me. And so, like but then I actually ended up meeting her, and she I remember her talking about diabetes, but it was never, like, a specific, like, yes. I have type one diabetes.
Okay.
Unless she did, and I just don't remember because I was 18. But
When when you met her. How'd you end up meeting her? Well,
my they didn't I think it was on the adoption papers. They forgot to, like, white out, I guess, essentially, her name. So we were able to go off of her name and my mom, like, my adopted mom. Well, I guess, my adopted mom, my third mom.
Wait. Who was the second one? He
my dad's first wife passed away when I was two. So you were They adopted me in.
You were adopted by a a man and his wife. And then when you were two, she passed away, and then he remarried. Yes. And so you've only so you don't even know you don't you don't have any recollection of your first adopted mom?
No. No. Not really at all. Like Wow. My brother does.
He was I think he was 10 when she died.
Okay. But your brother Yeah.
So they're my dad.
Wait. Is your brother another adopted person or is he natural to the two of them?
He's natural to my dad now and his first wife.
His first wife.
And then my dad remarried to the mom I have now, and they had two more kids.
Naturally.
Naturally. Yes. And I'm I'm the only adopted one.
It's so interesting that you don't refer to the woman who adopted you as your mom. She's your dad's first wife. Yeah. Have ever thought about that?
I have. Yeah. It's almost like I feel like I didn't have her long enough to call my mom or something. I feel like, I don't know. It's really weird.
I've definitely had this conversation in my mind before.
Yeah. Because if you were born to two people and two years later your mom died, you'd say that my mom died when I was two, and then my dad remarried and this is my step.
Well, yeah, don't know if I made it clear. My birth mom is not with, like, the dad that I'm,
like, talking about. You were clear. No. But so I yeah. So what I'm saying is is that I in a supposition kind of if if you suppose for a second let's say you were born to the people you were born to and they kept you.
And then two years later, your mom that mom died and then your father got remarried. You would say to people, my mom died when I was two. I was raised by my dad and my stepmom. Right?
Yeah. You're right.
Yeah. It's a it's
a It's funny you picked that up because that's definitely something that I think about where I don't usually refer her to as my mom.
Yeah. No. No. You're definitely you're talking around it on purpose. Like, but not, like, just because we're recording, that's how you talk about it.
Like, I could tell.
Oh, yeah.
This is the part I'm Wow. Yeah. Yeah. I'm really good at this part. I don't it's sorry.
No. I I know. I've I've noticed that.
Okay. Well, it's interesting. You should see a therapist. Do they have the honey cat, or what what would they do? They just put you with an otter?
Well, no. I think they just set you up with some, like, bear or something.
A bear. Yeah. Yeah. A bear. And the bear and an otter talk to you, but you feel better.
Better. And then you go work on the oil rigs, and then it's over.
Yeah. Exactly that.
You know, I I like to bring this up all the time, but there was a woman on one time who was a can can dancer up in, like, Northern Canada. And I was always, like like, just taken with that idea. She was she was just in a, like, a, like, a CD bar just, like, you know, shaking her ass
trying to get can can Yeah. Canada. Yeah.
Trying to get trying to get some some gold coins thrown out at the stage. I I don't think she did it long, but it was just the way she said it when she was like, was a can can dancer. I was like, get out of here. It's crazy. Wow.
Scott Plays Detective: Iron & Thyroid 59:07
Okay. Well, I am here's the things I'm worried about for you. Okay. I'm worried about your anemia. I think it's possibly still here.
I think you
should get Well, I'll get that blood work done.
Thank you. I think you should get a full thyroid panel while you're getting the iron panel just because your mom had type one, your birth mom had type one, and your kid has type one in celiac. So and you've had the endometriosis. I just feel like you're a you're a melting pot for something like that to happen. And
Probably.
And you you seem lovely, but you are struggling for, like, for your words.
Oh, I know. Yeah. Yeah. Yeah. It's been really bad.
Yeah.
It was perfect time for to, like, get on chest. Checked. You got your thyroid checked? What what how did that come back?
I think it was, well, it was under two.
The TSH was under two. Good. Good. I'm glad. See, I'm helping.
So then we then we got Yeah. Yeah. Then we get to anemia next. And now that I know you had you were anemic when they they I was gonna say when they hoisted out your
I was gonna say Just get rid of it, though.
You were anemic when they hoisted out your uterus, and they gave you an infusion. But those hospital infusions, I guarantee you, was one of the small bet, and it wasn't enough. I'm gonna guess. Okay. I'm betting my I'm gonna bet my my gold coin con dike can can
Bloonie?
Bloonies that you're anemic still. And that's why you're having brain fog right now.
Okay. That would make sense.
That's it all fits. And if I'm wrong, this was free. So what do you gotta do about it? But, like, I I really think that I think you call the doctor up and say, hey. I think I might still be anemic.
I need another test.
They did say, like, you could potentially need more.
Well, then what You know? God. Don't make me curse at you, Lana. Why didn't you do the thing then?
I don't know. I hate needles.
As much as you hate not being able to find simple words during conversation?
I can usually cover it up better, I feel. Focused, like Yeah.
Yeah. No. Yeah.
I know.
Yeah. You're you what do you do?
I mean, I'm so like, I'm just more scared of needles than I am of anything. Like, I didn't even have epidural with my kids.
So Listen to me. I'll go with you. Alright? Well, not me. I'll send to your husband.
But, I mean, like, someone will go with you. You'll be cool. It'll be fine. It'll be free. Can I I'm gonna tell you something crazy?
No. This is embarrassing. It's okay. So I'm having I've I've, you know, I my dental health is much better now that I go to the dentist more frequently. But when I grew up, I never went to the dentist.
Like, I think the first time I went to the dentist, that was, like, '19. And people are like, oh my god. Where was he? In the Adirondacks? No.
I was in Pennsylvania. And so but, anyway, like, I've had a number of root canals over my lifetime, and I've had them long enough ago now that a couple of them are but they're time to you gotta recondition them. You gotta get in there and and shine
them need to get a crown.
Well, no. Have a crown. Gotta take the crown they gotta take the crown off, go back in, clean it up again, put a new post in, like, all this stuff. Right? Mhmm.
So Yeah. I've I've been doing that this year for two of them. I've got one finished, and I'm working on the second one. So I went to the dentist two days ago where he, in the back of my jaw, injected me twice so that he could pop off the temporary crown Yeah. Clean it out, put the post in, and put on a temp another temp crown, wait for the real crown to come in.
So he injects me twice. And then the next day and this is the part I was gonna be embarrassed about. Arden and I went to get our eyebrows threaded. So I'm gonna be recorded for something next week, and I wanted to make sure my eyebrows were good. And she was going to
Is painful?
Well, you're getting you'll get the hold on for the story. And and and then and she's going to some sort of a like a college mixer this weekend. Like, you know, they're spending the night at like a hotel and there's like a big thing in there. So she she's like, I have to go get my eyebrows on. Do you wanna go?
And I was like, my god. Yeah. I'm doing that thing for Omnipod next week. I wanna go. And so, like, we went.
While she was plucking out the the my eyebrows, I actually thought, this hurts more than going to the dentist to me. And the dentist is using a jacked up big needle, but he's just he's an he's an artist. Like, the man's an artist. He should be there should be a statue to him somewhere. Yeah.
But I don't want you to get you wrong. Like, it's not that like, five seconds after they're done doing the the eyebrows, it's over. It's not like it doesn't linger or anything like that. And so my point is, does getting your eyebrows threaded really hurt worse than being shot with a needle in your mouth? I don't think so, but I think it's, the anticipation of it.
It's definitely the anticipation.
Yeah.
Yeah. I I work in dental, actually.
No.
So people coming I'm I'm, like, the front, so I was doing admin.
Mhmm.
So you could definitely tell when people were coming in. They're very nervous, and, like, no one likes the dentist. No one's happy to be there. They're so much different when they leave had, like, people apologize and be like, I'm sorry how I was at the beginning of this appointment. I love
I love going to the dentist. It's so relaxing. Like, so like Yeah. Because, like, two and a half hour appointment to work on a, like, work on the root canal. Right?
I put my head back. I put some I go I go to sleep. Sometimes they gotta wake me up to move me around. They're like, Scott, can you turn your head? I'm like, oh, sorry.
So relaxed. So relaxed. I love the my dentist says no one's ever said this before. But when they're cleaning out the roots, they use this bit that kinda feels like it's it feels bumpy. I don't know another way to say it.
Like, it feels like it's Mhmm. And it it makes a different sound, and it almost feels bumpy while it's in there. And he gets done, and I'm like, are you are you putting out the roots right there? I said, yeah. I said, I love that feeling.
But you're not really feeling it. You just kind of sort of feel it?
It's like it feels like like look. I don't obviously know what he's doing, but it feels like because I can't see it. But it feels like he's taking a round item and putting it into a tubular thing and that it's kind of boring through it. And Yeah. I like the way it feels.
So, anyway, take don't take me. And then I'm at the the threading, and I'm like, oh, that hurt. I go walk out, Arnie goes, okay. I'm like, oh, it hurts so much. So
I've had that done.
Yeah. By the time you get to the car, it's over.
Yeah. You know?
But it's Good. Yeah. $7, by the way. Very realistic.
Well, let's keep there. I don't know if it'd be that cheap here.
Yeah. Well, maybe. Listen. Let me give you a good a good tip. Find an Indian population to do it for you.
Okay.
Really, they're Yeah.
See, I could see them being really good.
Very good. Very good. Nevertheless. Alright. Well, do you you know what to do now?
You know what you're gonna do?
Go get my blood test.
Doctor. Get my blood test. Make sure I'm not anemic. Get some more infusions. Feel better in a couple of months.
Probably send you an email and say thank you. That's probably how it
works.
Olive, Sewing & a Dream of Acreage 1:06:13
Right. And then and then you'll be able to, like, kinda, like, drill down on no pun intended on the kid's diabetes, get yourself some rest, and be okay. Are we worried about this other kid? Is he a ticking time bomb? Or she?
By the way, great name. Olive. Really great name.
Olive. Yeah. Yeah. Thanks.
Yeah. Yeah. Yep. Does she have anything going on or not so far?
No. Not that we know of. She seems okay, and I hope that it stays that way.
Yeah. No. Me too.
I always see, like, when other people are like, oh, my second type one diabetic child. I'm just like, I can't even I mean, we can't you can imagine it, but it's just one is enough to deal with.
No. Thank you. I'm okay.
Yeah. Yeah. I'm okay.
You can give that to somebody else.
Yeah. We'll be hard. We're good here.
We're good here. Everybody's fine. Thanks. Oh my gosh. Well, I would ask you if there's anything else that we should have talked about that we didn't, but I don't know how the hell you would remember.
So
Well, that's yeah. I wrote all down.
You wrote it all down. By the way, the beginning, she's like, but my notes are on my phone, and we're using my phone to record, and I can't go to my notes without shutting my phone off. And I was like, send them to your send them to your computer. And she was like, how is that gonna happen?
No. No. No. I knew how. I just couldn't exit out of you in my email.
Exit out of you in my email. It should be the name of my my autobiography. But seriously, is there anything that we didn't talk about that we should have? This was a little more about you than it was about the kid, but I I'm okay with was.
Yeah. And it it's funny because I even said that when I was talking to my husband, I'm like, who knows what avenue we are going to go down? Because listening to your podcast, it's you never know.
Yeah. Please.
I listen to it all the time while I'm sewing.
So Thank you. I appreciate it. With sewing? What are you sewing? What are making?
I sew and sell children's clothing.
Oh, wow. Is it extra warm? It
can be, like, really warm. How do you
how do you sell it?
What do mean how?
The Internet? You sell it on the corner? You you go to Chick fil A and do it with the marketing lot?
No. No. Sell it. What do you mean how?
What's your
Yeah. I do sell online. I'm not very good at getting the stuff up on there. So anytime people are like, oh, you have a website? I'm like, yeah.
Sort of. But I usually do markets around the city here. And then now that I've gotten quite a quite a good clientele, people just do a lot of
Yeah.
Custom orders. So I show them the fabric that I have, and then I have my website showing the kind of things that I could make, and then we just go from there. And I sew their children up lovely wardrobes.
Listen to me. What's your web address? How do the people find you? I don't normally pimp people's businesses, but this sounds lovely. What are we doing here?
Aa.com of some sort? What do you got?
Unfortunately, it is not a.com because I don't ship anywhere outside of Canada.
Sorry. Canadians listen to this. I just wanna go look at it. What's the address?
Oh, it is www.gabeandolive.ca.
Dot c a?
I usually
Who even knew that was real?
Use more of, like, my Instagram.
Oh, of course. What's your well, hold on. I'll tell people. Oh, this is nice. Hold on a second.
Oh, look at you. And there's moose on there. Of course, there's moose. Why would it's all you know about. Is this you in the photo?
What? Let me just I
feel like Do you not know your own website?
I
Oh my god, Imperial. Do you not know if this is you on your website or not?
Well, it's me.
Well, then just say yes.
I'm just saying. I was like, wait. I had
get to a fight in a second.
Oh, there I am.
So t shirts, tops, little skirt, top. Oh, that's cute. Look at you.
That's me. Oh my gosh.
Oh my gosh. Lovely. This is wonderful. You make all this yourself?
Yeah. Yeah. I do it all myself. I kind of learned from mostly the Internet or just kind of picking up my this one girl on my Facebook. I was kinda friends with her back in the day, and I kept seeing her stuff that she was making.
And I'm like, can you can I come over and you just show me how to use a serger? So she said, yes. And I went over there, and I, like, sewed something up, and I just went on from there.
And just ripped her off and knocked her out of business. Is that what you did?
Well, she always says that I've actually out what it whatever it hurt in her because I went to markets, now I sell to a bunch of people. So
Oh, lovely. Oh, look at this.
Outdone the teacher, I guess, she said.
Oh, look at this cardigan. You're you're really talented. This is wonderful.
Oh, thank you.
Yeah. Oh, that's cool.
Yeah. So and, like, I sell for my family, but I don't really sell a whole lot of adult stuff just because I mean, people say they want it, and then I'm like, this is how much. And they're like, oh, okay.
Never mind. I'm gonna go to Walmart, but thank you.
Yeah. Never mind.
It's funny they'll spend they'll spend it on their kids, but not on themselves.
Yeah. Kind of. But, mean, I feel like it's I don't know. The way my clothing is is a lot of it is it does actually last a a lot longer than maybe a typical outfit from the store.
Yeah. I would imagine.
My kids have still worn for, like, two to three years. So
I don't know. Thank god I don't have babies because if I showed this to my wife, we'd be Yeah. Paying the shipping.
I know. I'm kinda glad I started sewing after my kids were not babies anymore. Yeah. I started during COVID.
Alright. Well, listen, Canadians. Gabenolive.ca. You can go look yourself. Buy something.
Obviously, buy something from Lana. She needs she needs a steak. She gotta get her she gotta get her her iron up. Help her out a little bit. My gosh.
Well
Man, I need to get my iron up, and then maybe in, like, two years so that I can come back on here and I'll be a whole new unfoggy person.
Well, I was just gonna say, honestly, when you get this all figured out, I think I might like it if you came back on after you listened to yourself. Because it's possible you're gonna be like, oh my god. What the hell is going on? Because Great. Yeah.
No. Because I've gone through it. Like, I've had really low iron. And I'm telling you, like, you're doing shit you don't even realize you're doing. So Oh, no.
Yeah. All you go after I is check your
feel like well, I also do have anxiety, so that doesn't help things.
Well, do you know that come hold on a second while I teach you. Anxiety and anemia, think, go hand in hand. So if you are like, let's say you have silent celiac maybe or, you know, there's another reason that you're anemic, you could you could have low iron throughout your life. Yeah. And anemia can possibly make anxiety feel worse, and sometimes it can look like anxiety even when the main driver is just low iron, low b twelve blood loss, or another anemia cause.
Do you have do do you have a computer there in in Canada? You do. Right?
I do have a computer.
Yeah. Have you have you found the chat sheet PT yet and stuff like that? Yeah. Yeah. Just type
in I do know how to use that.
Just type in anemia impacts anxiety, and then just go read it. Okay. Okay? Because anemia may not cause anxiety in the emotional sense, but it can create body sensations that your brain interprets as danger, racing heart, breathlessness, shakiness, exhaustion, and that can trigger or amplify anxiety.
Oh, yeah.
You're like, oh, that's me. Want me to keep reading? Iron deficient anemia, especially can cause fatigue, shortness of breath, chest discomfort, fast heartbeat, dizziness, lightheadedness, cold hands or feet, and the symptoms often intensify as the deficiency gets worse. Do you have shortness of breath when you run up steps?
Not really. No. And I've started to work out. I go to a trainer.
So Okay. Just feel I feel like you just you just CBC, ferritin, iron, panel, b twelve, folate, thyroid test, and evaluate blood loss if the iron is low. Like, you're not you have you don't have any GI bleeding or anything like that. Right? No.
No. Do you still get your period without your uterus? Nope. No. Right?
See, that was the problem with that's why I was so low iron.
Yeah. Yeah. Yeah. You just need two more jackups. Two more bags up.
I tell you, two more bags and you're set. I'm not a doctor, and this is not advice. But two more bags and I think you're a different person.
Yeah. I definitely okay. You know what? I'm gonna call my doctor. I'm gonna get another blood work done and see how my ferritin is.
Everyone says it. With glow. Everyone says it. Not enough people email me back and say I did it. So
Do you want me to email you back?
I do, but you won't. Because no one ever does. Just a throwaway avatar in your life. I'm not a real person to you. That's fine.
Alright. I do not use avatars.
But did you like the movie with the blue things and the dragons?
No. I actually didn't.
Why not? Why why are you the only person that didn't like avatar?
I I don't know. But I remember everyone talking about how amazing it was, and I'm like, okay. I kinda found that boring. Okay.
I don't know. The ride at Disney is pretty awesome or wherever it is. I don't know where it is. Disney? Maybe.
Oh. It's a good ride.
Haven't been.
Yeah. Well, I mean, how are you gonna get out of the country?
I don't know.
Yeah. You don't have enough energy. You're not gonna make it.
I actually just have zero desire to travel right now.
Maybe you'll feel better after your iron's heart. Right now, I mean, the idea of getting on a pontoon boat and then taking a kayak to get to a bus, to get to an airport. I mean, how are you gonna it's a lot of work. And then
That sounds exhausting.
The last 50 miles are sled dog. Right? And then you're on your way, but it's not great. How did you end are you born there? How you I almost said, how do you end up there?
I was born in Saskatchewan, and I have not moved or, like, lived anywhere else other than Saskatchewan.
Interesting.
I almost moved to Alberta, but then I didn't, and I'm glad I didn't. And I like that I live out on an acreage out of the city.
How much I grew up on a farm. How much space?
Just, like, under three acres. It's small, but it I can see the stars, and the sunsets, and the sunrises, and it's glorious.
I'm not gonna argue with you. I looked at a house in the South, and I didn't have like, I wasn't really like, I wasn't like, show me a house. I was going through I'll I'll explain this to I was going through Tennessee on the way to Atlanta to do a talk in Atlanta for Touched by Type one, which by the way, went great. Touchedbytype1.org. Check it out.
And then I
Check it.
But I I had met I hope this is doesn't sound too obtuse, but I I went on a cruise in December to check out the ship that I'm taking everybody on
Right.
In June. And while I was on the ship, I met a woman who was a former American Idol contestant. She was singing on the It it it's just kinda funny. And and her name's Ashley Amber. She's might be somebody you recognize because she has, like, like, a really, like, a giant, like, afro.
So I think that's how people know her. Anyway Okay. She was singing on the ship. She and I were getting food at the same time on the ship, and somebody had kind of, like, accosted her. Like, somebody somebody recognized her from the being the singer, obviously, and then was talking to her, not meanly, but was really just monopolizing her time.
So I have kinda gone through that at diabetes events. I can tell the look on her face when she's like, I'm just trying to eat this food. Please leave me alone for five seconds. Right? I kinda I stepped in, and I was like, oh my god.
Hi. And I kind of just, like, hijacked the conversation. Then the woman felt the pressure. She excused herself and left. And then she looked at me like, oh god.
No. Was like, you and I went, hey. I don't really wanna talk to you. I was just saving you. Go ahead and eat your dinner.
And she she comes up to me afterwards. She goes, how did you know I needed to be safe? And I said, well, in certain situations, I'm more famous than anyone in the world. And and I was like, but not in many situations, just in very specific ones. I was like, and I I know the look of I'm just trying to eat this food, please.
I just I need five minutes. And then we started talking. That's amazing. Yeah. We started talking, and she's like, actually, I'm not gonna do the ships much longer.
I'm really gonna pivot to because this is how she makes her living. She sings on cruise ships. And and then she's like, I'm gonna start selling real estate in Tennessee. And she's like, I live in Nashville. And I was like, oh, that's one of the places I talked to my wife about moving to.
And so we just kinda kept in contact, and then I found myself traveling to Atlanta. And I said, crazy question. If I drove to Atlanta instead of flew there, if I spun through, could you just show me a couple of houses real quick? I'm not looking for a house. It will be a waste of your time.
But, like, can you would you? And she was nice enough to do it. So she just picked a couple of houses, and I didn't know where to pick or I I had no idea. Like, I hadn't looked into it at all. And I just followed her lead, and she put me on this piece of property.
It was five acres. And I it took a while to get from the road to the house. And then I walked the house, and I was like, this is really lovely. It was, like, new construction and everything. Was really nice.
And I walked out back, and I was making a video for Kelly who was not with me. I was gonna show her the house. And I got outside, and it struck me how silent it was outside. There was no noise anywhere. And then a bird chirped.
Not 20, not a thousand. And I and I realized I'm only listening to the bird chirping right now. And I could've yeah. I would've like, if I didn't have kids and a wife, I would've just been like, this is fine. I'll take this one, and I would've just stayed.
See you. Yeah.
Yeah. This is good. I'll be okay here.
Mhmm.
I I I take your point because I've been bugging my family incessantly about it since then. I was like, come on. Yeah. This is the art. And I'm like, I know you probably love your boyfriend.
I'm like, but you could find another guy. Like, let's go. So and
I mean, I feel like had I been 20, I would not have wanted to move out here. I was like, yes. City life. Woo. Mhmm.
And then it got into my later years, like, 35, and I'm like, hey. You know what? I think we could move out to an acreage. And then finally, it happened, like, a year and a half ago.
Yeah. I'm in. I'll leave right now. Like, I'll I'll you got I'll sell this and leave. You can have it as is.
I'll buy a new bed when I get there. Like, I'm I'd be happy I'd be happy to go. So I don't think I'll
I got a large
ever gonna happen.
Large garden. It's Yeah. It's awesome.
I said to my wife, I was like, you could plant something. I'm like, you're always talking about it. You could actually do it. You know? Like, you already
worked food or just flowers?
Any who cares? Right? Get a chicken. I don't know.
There's a fox. A fox just ran by our yard.
Oh, what does the fox say? Did it say anything?
What does the fox say? I know. He's just running. He's so cute.
Look at that. That's he was.
So, like, ADHD, just like a fox.
Oh my god. Fox. I was like, when you said that, I thought I thought you were pretending that a fox ran by during my my experience. I thought you were adding
It's not very often that we see a fox. We see lots of deer, but a fox is not as common.
Oh my.
They're around, but I just don't see them.
Yeah. Well, anyway, I guess there's a long way of saying if you're looking for a realtor in the Nashville area, Ashley Amber. She really is Good to know. Fantastic. Alright.
I'm gonna let you go now. Hold on a second. Okay. Stay with me. The podcast episode that you just enjoyed was sponsored by Eversense CGM.
They make the Eversense three sixty five. That thing lasts a whole year. One insertion? Every year? Come on.
You probably feel like I'm messing with you, but I'm not. Ever since cgm.com/juicebox. I'd like to thank the blood glucose meter that my daughter carries, the Kontoor Next Gen blood glucose meter. Learn more and get started today at kontoornext.com/juicebox. And don't forget, you may be paying more through your insurance right now for the meter you have than you would pay for the Kontoor Next Gen in cash.
There are links in the show notes of the audio app you're listening in right now and links at juiceboxpodcast.com to Kontoor and all of the sponsors. A huge thanks to today's sponsor, AbleNow. Able Now offers tax advantaged able accounts for eligible individuals with disabilities. If you or your child lives with diabetes, you may qualify because of ongoing medical needs. With Able Now, you can save for a wide range of disability related expenses without affecting eligibility for certain disability benefits such as Medicaid.
And thanks to recent federal law updates, more people are eligible than ever before. Learn more and check your eligibilityablenow.com. You spell that ablenow.com. There's links in the show notes and links at juiceboxpodcast.com.
- Type 1 rode in behind celiac. Gabriel’s diabetes was caught at a routine celiac follow-up draw — his a1c had jumped from about 4.8 to 7.8 in a few months — and they escaped DKA only because that bloodwork was already scheduled. With one autoimmune diagnosis, staying alert for the next one matters.
- A DIY closed loop (AAPS) is powerful but has rough edges. Their pain point: a compression false-low makes the algorithm cut basal, then it over-boluses the rebound. Their fix is a temp target. Knowing your system’s failure modes — and how to override them — is part of looping.
- Caregiver health is part of the kid’s care. Scott walked Lana through brain fog, fatigue, hair loss, and weight gain that may trace to iron deficiency (one transfusion is often not enough) and possibly thyroid — and noted anemia can mimic or amplify anxiety. Worth a full panel: CBC, ferritin, iron, B12, folate, thyroid. Many clinicians aim for ferritin ≥70 in women. Decisions belong with your doctor.
- Low-carb helped, until it didn’t. They leaned keto/low-carb early (easier with celiac), but Gabriel wasn’t gaining weight, so they reintroduced carbs. Growth comes first — a number on the meter isn’t worth stalling a kid’s development.
- An a1c of 6.0 is excellent — and self-criticism is common anyway. Lana hoped for the 5s and felt let down by a 6.0. Naming that pattern matters as much as the number; the goal is health and sustainability, not perfection.
- AbleNow — Tax-advantaged ABLE savings accounts for eligible people with disabilities — an episode sponsor.
- Contour Next Gen — The blood-glucose meter Arden carries — an episode sponsor. May be cheaper in cash than your insurance meter.
- Eversense 365 — The one-year implantable CGM — an episode sponsor.
- Gabe & Olive (Lana’s shop) — Lana’s handmade children’s clothing, named for her kids — Canadian shipping. Scott insisted we share it.
- AndroidAPS (AAPS) — The open-source DIY automated insulin delivery system Lana’s husband John set up.
- Bold Beginnings Series — The newly-diagnosed series Scott points listeners to.
