#1857 Jersey Represent
Adult-diagnosed LADA veteran and breast cancer survivor Naomi shares how cancer reframed her relationship with diabetes numbers, her strategies for running, and a realistic take on cure timelines.
Key Takeaways
- Adult-Onset Misdiagnosis: Latent Autoimmune Diabetes in Adults (LADA) is frequently misdiagnosed as Type 2 diabetes initially, demonstrating the critical importance of autoantibody testing (like GAD) for older adults presenting with elevated glucose[cite: 3296, 3297, 3301].
- Empowered Self-Advocacy: Naomi stresses that patients must heavily research and actively advocate for their treatment plans, including pushing providers for insulin therapies when remaining at baseline elevations of 140–150 mg/dL[cite: 3289, 3290, 3292].
- T1D and Running Dynamics: Managing long-distance running requires adjusting for competitive environmental triggers like "foot-to-floor" syndrome, carrying fast-acting glucose infrastructure, and tracking shifting patterns where adrenaline spikes give way to late-run crashes[cite: 3496, 3502, 3510].
- A Shifting Horizon on Perfectionism: Facing a serious alternative health challenge, such as stage 1 breast cancer, can fundamentally reset care priorities, easing obsessive anxiety over singular blood sugar fluctuations[cite: 3393, 3397, 3474].
- Transplant Realities: While experimental clinical islet cell and stem cell protocols show monumental promise, structural delivery challenges, insurance roadblocks, and the need for regular anti-rejection infusions create a prolonged timeline to general availability[cite: 3937, 3954, 4007, 4010].
Resources Mentioned
- Omnipod 5 Automated Insulin Delivery System [cite: 3275, 3489]
- US Med Supplying Delivery Fulfillment [cite: 3278, 3447]
- Breakthrough T1D (Formerly JDRF) [cite: 3517, 3888]
- Juicebox Podcast (Small Sips & Bold Beginnings Series) [cite: 3264, 4104]
- Think Like a Pancreas by Gary Scheiner [cite: 3327]
- Healthy Kick Ass Lada (Community Reference Manual) [cite: 3327]
Introduction and LADA Misdiagnosis
Scott Benner Friends, we're all back together for the next episode of the Juice Box podcast[cite: 3262]. Welcome[cite: 3262].
Naomi Hi[cite: 3262]. My name is Naomi[cite: 3263]. I am from New Jersey, and I am a type one diabetic diagnosed in 2016 as an adult[cite: 3263]. One of those lotta people[cite: 3264].
Scott Benner If you'd like to hear about diabetes management in easy to take in bits, check out the small sips[cite: 3264]. That's the series on the Juice Box podcast that listeners are talking about like it's a cheat code[cite: 3265]. These are perfect little bursts of clarity, one person said[cite: 3266]. I finally understood things I've heard a 100 times[cite: 3267]. Short, simple, and somehow exactly what I needed[cite: 3267].
Scott Benner People say small sips feels like someone pulling up a chair, sliding a cup across the table, and giving you one clean idea at a time[cite: 3268]. Nothing overwhelming, no fire hose of information, just steady helpful nudges that actually stick[cite: 3269]. People listen in their car, on walks, or rather actually bolus ing anytime that they need a quick shot of perspective[cite: 3270]. And the reviews, they all say the same thing[cite: 3271]. Small sips makes diabetes make sense[cite: 3271]. Search for the Juice Box podcast, small sips, wherever you get audio[cite: 3272].
Scott Benner Nothing you hear on the Juice Box podcast should be considered advice, medical or otherwise[cite: 3273]. Always consult physician before making any changes to your health care plan[cite: 3274]. A huge thanks to my longest sponsor, Omnipod[cite: 3275]. Check out the Omnipod five now with my link, omnipod.com/juicebox[cite: 3275]. You may be eligible for a free starter kit, a free Omnipod five starter kit at my link[cite: 3276]. Go check it out[cite: 3277]. Omnipod.com/juicebox[cite: 3277]. Terms and conditions apply[cite: 3277]. Full terms and conditions can be found at omnipod.com/juicebox[cite: 3278]. Today's episode is also sponsored by US Med[cite: 3278]. Usmed.com/juicebox or call (888) 721-1514[cite: 3279]. US Med is where my daughter gets her diabetes supplies from, and you could too[cite: 3279]. Use the link or number to get your free benefit check and get started today with US Med[cite: 3280].
Naomi Hi[cite: 3281]. My name is Naomi[cite: 3281]. I am from New Jersey, and I am a type one diabetic diagnosed in 2016 as an adult[cite: 3281]. One of those lotta people that you hear about[cite: 3282].
Scott Benner That you hear about[cite: 3282]. We hear we hear from a lotta people with lotta[cite: 3283]. You're almost up to a decade, or you hit it already[cite: 3284]?
Naomi Yes[cite: 3284]. So I'm almost coming up to a decade this summer[cite: 3285]. Wow[cite: 3285]. I didn't need insulin originally when I was first diagnosed[cite: 3286]. My my sugars were, you know, pretty pretty well controlled with low carb and exercise[cite: 3287]. And, gradually, you know, as the years went on by year five, I was realizing that my my glucose numbers were creeping up, you know, even despite a low carb, high exercise diet and and a diet of exercise as well[cite: 3288]. But at that point, I really had to push my endocrinologist for insulin[cite: 3289]. I felt as though, you know, all of the research that I had done and everything that I had read, you know, told me that being at one forty, one fifty all the time, like, wasn't really normal[cite: 3290]. I know it's, you know, within range for many people, but I knew at that point, you know, well, maybe somebody should be offering me insulin at this point, but it wasn't happening[cite: 3291]. So I I just pushed for it and advocated for it[cite: 3292]. And every time I went said, you know, I think it's time[cite: 3293]. I think it's time[cite: 3293]. I wanna try it[cite: 3294]. I think I'll be okay with it[cite: 3294]. And that that got me down to, you know, more reasonable range with fasting numbers and things like that[cite: 3295].
Scott Benner So question[cite: 3295]. When you were diagnosed originally, they told you you were type two[cite: 3296]?
Naomi Yes[cite: 3296]. Originally, I was diagnosed at first by my regular GP[cite: 3297]. He noticed that my sugar was high, one time when I went just for an average visit[cite: 3298]. I had no symptoms, felt nothing, wasn't drinking excessively, wasn't going to the bathroom a lot like you hear with a lot of other people[cite: 3299]. I'm gonna send out your blood for this antibody auto antibody test to just see if you have the antibodies for type one diabetes[cite: 3300]. I was positive for just the GAD one, but he wasn't sure[cite: 3301]. He said it was, like, borderline and potentially I could have been type two[cite: 3302]. He referred me to an endocrinologist[cite: 3303]. And I'm still with that endocrinologist today, and I really do like her a lot[cite: 3303]. But she was kind of of the school, it doesn't really matter if you're type one or type two, we're just gonna watch your numbers[cite: 3304]. And I thought that was a little you know, odd[cite: 3305]. I thought, you know, well, no[cite: 3305]. Shouldn't we know because I may eventually need insulin if I am a type one[cite: 3306]?
Scott Benner Also, what the heck[cite: 3306]? Right[cite: 3307]? Why don't we know for sure[cite: 3307]?
Naomi Yeah[cite: 3307]. I just like to know[cite: 3308]. I mean, I'm the type[cite: 3308]. I like to know everything about everything[cite: 3308]. I research everything[cite: 3308]. I read everything[cite: 3309]. So...
Managing Hypothyroidism and Breast Cancer
Scott Benner Oh, Amy, I don't think you need to be the type to wanna know that[cite: 3309]. That one's that one's pretty easy[cite: 3310]. So you I heard you stumble when you said I'm still with her[cite: 3310]. Is that the, like do you feel like I'm about to judge you for not finding a doctor who didn't misdiagnose you for five years[cite: 3311]?
Naomi I'm not I'm not so much worried about you judging me[cite: 3312]. I'm I'm worried about my own judgment of myself sometimes that I that I stick with her[cite: 3313]. I really do like her, and she's been helpful, you know, throughout the years[cite: 3314]. And, you know, I just realized that the relationship is more of, me doing the research and me advocating for myself rather than[cite: 3315]...
Scott Benner And her having access to a prescription pad[cite: 3315]?
Naomi Yes[cite: 3316]. And sometimes I feel yeah[cite: 3316]. Like, not that I know more than the endocrinologist, but I know a lot at this point[cite: 3316]. You know, obviously, as a type one diabetic, you educate yourself, and you're your own best advocate[cite: 3317]. So...
Scott Benner Yeah[cite: 3317].
Naomi I always go in there prepared with, well, what about this[cite: 3318]? And let's try this[cite: 3319]. And what about this research[cite: 3319]? And you know[cite: 3319]?
Scott Benner Well, how old were you at the original diagnosis with the GP[cite: 3320]?
Naomi I was 47[cite: 3321].
Scott Benner So 47 years old[cite: 3321]. You went to the doctor just because you were going[cite: 3321]?
Naomi It was my regular yearly physical[cite: 3322].
Scott Benner Okay[cite: 3322]. You showed up that day being like, I'm 47[cite: 3323]. I'm doing great[cite: 3323]. I have no complaints[cite: 3323]. And you left that office an hour later going, I have diabetes[cite: 3324]?
Naomi No[cite: 3325]. It was not an hour later[cite: 3325]. He said my sugar was high and, you know, we'll send we'll do this other blood work and we'll send it out[cite: 3325]. So it wasn't until, a couple weeks later that he called and I was I remember, you know, I remember the call exactly[cite: 3326]. I was in a hotel room at, like, my son's college orientation[cite: 3327]. And he he said, you know, I think that you have diabetes because you've borderline for this antibody[cite: 3328].
Scott Benner Your sugar's been elevated to [cite: 3328]
Naomi a one c[cite: 3329]. So it was kind of a shock because, you know, I was, you know, very good health[cite: 3330]. And...
Scott Benner Fair to say you left that appointment[cite: 3331]. He said we're gonna send some blood out[cite: 3331]. You didn't think about it again[cite: 3332]. You didn't think someone's [cite: 3332]
Naomi gonna in a million years would I have suspected I had diabetes[cite: 3332]. Now I had just come off of this you know, subsequently to the diagnosis, I had read that it could be triggered by a virus or an infection of some sort[cite: 3333]. So I had just come off a very, very bad infection for which I was hospitalized[cite: 3334]. So in my my endocrinologist didn't think necessarily there was that correlation, but in the back of my mind, I thought, oh, maybe that's what did trigger it[cite: 3335].
Scott Benner So you've obviously done a lot of picking around since then[cite: 3336]. And so hindsight, is there other autoimmune stuff in your extended family[cite: 3336]?
Naomi Not in my extended family at all[cite: 3337]. No[cite: 3338]. I I have thyroid issue[cite: 3338]. You know, I'm on I have is it hypothyroidism[cite: 3338]?
Scott Benner Hypo[cite: 3339]. Yeah[cite: 3339].
Naomi Yes[cite: 3339]. So I'm hypothyroidism[cite: 3339]. My dad was a type two diabetic, but that was really, I believe, diet related, and he was overweight and all of that[cite: 3340]. But no one in my family that I know of was a type one diabetic or had any autoimmune issues[cite: 3341]. So it's it was such a shock[cite: 3342]. You know[cite: 3342]?
Scott Benner No[cite: 3342]. No[cite: 3342]. No[cite: 3342]. I hear you[cite: 3342]. How long had you had the the hypothyroidism diagnosis[cite: 3343]?
Naomi That I've had for about twenty years[cite: 3343].
Scott Benner You're gonna say that's longer[cite: 3344]. Right[cite: 3344]?
Naomi Mhmm[cite: 3344].
Scott Benner Yeah[cite: 3344]. Yeah[cite: 3344]. Yeah[cite: 3344]. And nobody else in your family has that[cite: 3345]? No[cite: 3345]. Just lucky[cite: 3345].
Naomi To my knowledge, unless, you know, with my grandparents, you don't know[cite: 3346]. They're not here anymore[cite: 3346]. You know, I can't ask them[cite: 3347]. But Yeah[cite: 3347]. But it wasn't something that I was aware of or that my parents talked about my grandparents having[cite: 3348].
Anxiety and Perfectionism
Scott Benner Gotcha[cite: 3349]. Okay[cite: 3349]. Have you all you described yourself in your note as a perfectionist[cite: 3349]?
Naomi Yes[cite: 3349].
Scott Benner Has that always been the case[cite: 3350]?
Naomi You know, I've always been a little bit of sort of an overachiever and, you know, wanting everything to be perfect and in place and organized and me being on top of everything[cite: 3350]. And, that is a tough sell with diabetes because it's hard to be a perfectionist with diabetes because you can't be perfect[cite: 3351]. Yeah[cite: 3352]. So that that's tough[cite: 3352]. So in the in the beginning and and even to this day, I say, you know, I'm not as obsessive about my numbers, but I kind of really still am a little bit, and I check my my phone much more often than I think is probably healthy[cite: 3352].
Naomi Mhmm[cite: 3353]. I'm trying to get my mindset more to the place of, you know, yes[cite: 3353]. I wanna have good numbers and be in range all the time, but at the same time, I also don't want to take years off my life by stressing about the numbers and worrying about the diabetes and checking my numbers so frequently[cite: 3354].
Scott Benner That kind of personality trait[cite: 3355]. Entire life as a child and a teen in high school too[cite: 3355]? Or more as in your twenties[cite: 3356]?
Naomi At that time, I I felt that there was less to obsess about or control[cite: 3356]. Like, I didn't have control issues when I was growing up or anything like that or wanting to be in control all the time[cite: 3357]. But with the diabetes, I feel as though it almost got worse because you had this number and you have the technology where you can look at it all the time and you can manage it all the time and you can micromanage it, you know, with microdosing[cite: 3358]. And, you know, so I'm sort of in that place where I I am very on top of it[cite: 3359].
Scott Benner Yeah[cite: 3360]. Let be a little less obtuse[cite: 3360]. Okay[cite: 3360]?
Naomi K[cite: 3361].
Scott Benner Do you have anxiety, and did it start when your thyroid diagnosis came[cite: 3361]?
Naomi No[cite: 3362]. I I will say right now, no[cite: 3362]. I do not have anxiety[cite: 3362]. I have struggled with anxiety in the past, and I've been in therapy for that and everything, but not in a not in a very long time[cite: 3363]. But I think it has crept back up with the diabetes[cite: 3364].
Naomi I don't think of myself as an anxious person[cite: 3365]. I think of it as more of, you know, I wanna be in in control of my diabetes[cite: 3366]. I wanna control it rather than have it control me[cite: 3367].
Scott Benner Yeah[cite: 3367]. Yeah[cite: 3367]. Yeah[cite: 3367]. I also wanna tell people who are listening around the country and around the world that you talk faster[cite: 3368]. You probably seem anxious to them, but you're just from Jersey[cite: 3369].
Scott Benner So...
Naomi I'm from I'm from New York originally[cite: 3370].
Scott Benner I I just...
Naomi talk very fast, so I will try to slow that down[cite: 3371].
Scott Benner No[cite: 3372]. No[cite: 3372]. You're doing fine[cite: 3372]. I'm I'm slowing myself down so the two of us aren't doing it together[cite: 3372]. Okay[cite: 3373]. Because I you and I are probably very close to each other, physically[cite: 3373]. Mhmm[cite: 3373]. Yeah[cite: 3374]. Yeah[cite: 3374]. So, if I get going, you and I'll just be going at a speed that no one else will be able to listen to[cite: 3374].
Scott Benner So...
Naomi Yes[cite: 3375]. And and I especially find I talk faster when I am very interested in the topic, and I'm very invested in the topic[cite: 3375]. I tend to get a little more excited about it[cite: 3376].
Scott Benner Yeah[cite: 3376]. Sure[cite: 3376]. Hey[cite: 3376]. Listen[cite: 3376]. It took me it took me the better part of, like, six years making this podcast to learn how to slow myself down[cite: 3377].
Scott Benner So...
Naomi Wow[cite: 3378].
Scott Benner So what I was gonna say is that, like, anxiety can be a side effect of, like, a mistreated thyroid[cite: 3378]. And so my last question about your thyroid is is do you know where your TSH level sits[cite: 3379]?
Naomi I have it in my blood work[cite: 3380]. I don't know it off the top of my head, but I'm doing fine according to my endocrinologist[cite: 3380]. I am on medication for it, but I'm not it's not anything where she's had to adjust my medication because I'm too high or too low[cite: 3381]. I'm I'm within the normal range[cite: 3382]. I do know that[cite: 3382].
Scott Benner I bring this up because the normal range is pretty wide and a really a well thought out endo around thyroid will will manage your TSH under a 2.1[cite: 3383]. So do you have any other hypothyroid symptoms[cite: 3384]? Are you tired a lot, can't get rested, hair falls out, brittle nails[cite: 3384]? I'm trying to think anything like that, fatigue[cite: 3385].
Naomi You know, I I have some of that, but that's due to my my breast cancer diagnosis[cite: 3385].
Scott Benner Yeah[cite: 3386]. Well, listen[cite: 3386]. I I'm not a doctor[cite: 3386]. What I'm gonna tell you is if you dig around in that blood work at some point and realize that your TSH is, like, three and a half and she's telling you it's good, then then[cite: 3387]...
Naomi No[cite: 3387]. I just found it[cite: 3387]. I pulled it up in my you know, in the Apple Health app, you can, if you connect it to all of your health apps in your MyCharts, you can just punch in TSH in the search bar, and it it just came up[cite: 3388]. So I am 1.3[cite: 3389].
Scott Benner Oh, that's beautiful[cite: 3389]. Okay[cite: 3389]. Good[cite: 3389]. You are a perfectionist[cite: 3389]. You have your health app attached to your look at you[cite: 3390]. You're proving you're proving yourself right the whole way[cite: 3391].
Naomi I didn't do that myself[cite: 3391]. My son had to set that up for me[cite: 3392]. So...
Cancer Realities and Shifting Perceptions
Scott Benner Tell me about the cancer[cite: 3392].
Naomi Okay[cite: 3393]. So I was diagnosed with the breast cancer last summer[cite: 3393]. Also, you know, another shock because I think of myself as such a healthy person, but, you know, it can happen[cite: 3394]. It happens to one in eight women[cite: 3395]. So, again, regular mammogram[cite: 3395]. I didn't feel anything[cite: 3395]. It wasn't the mammogram that picked it up[cite: 3396]. It was the ultrasound that picked it up[cite: 3396]. They did a biopsy[cite: 3397]. I luckily, I was stage one[cite: 3397]. It had not spread to my lymph nodes, so so I am very lucky[cite: 3398].
Naomi However, anyone with breast cancer knows you they send your tumor out when they do the surgery[cite: 3399]. They send it out to some lab in California, they do something called an Oncotype DX score[cite: 3400]. And that is, a score that tells you whether or not you will benefit from chemotherapy[cite: 3401]. My score came back very high, so they did recommend chemotherapy[cite: 3402]. So I did go through the whole treatment process of chemotherapy and radiation, and, I finished radiation in February[cite: 3403].
Scott Benner Congratulations[cite: 3404].
Naomi Thank you[cite: 3404]. Thank you[cite: 3404]. So and now I'm just on the, aromatase inhibitor, which is supposed to tamp down your estrogen[cite: 3404]. I had the type of breast cancer ER positive[cite: 3405]. My cancer grew in estrogen, so they tried to block that as much as possible going forward[cite: 3406]. And and I think that does cause some you know, that causes some fatigue and all that[cite: 3407]. Also, just basically what my body has been through, you know, over the last, you know, eight months or so[cite: 3408].
Scott Benner Two things[cite: 3419]. First of all, my anxiety grows and estrogen comes from my wish and my daughter[cite: 3409].
Naomi That'll do it[cite: 3410].
Scott Benner Yeah[cite: 3411]. Yeah[cite: 3411]. Yeah[cite: 3411]. And the the second thing is you said something offhandedly a second ago that I wanna double back to[cite: 3411]. You know, I think of myself as a healthy person[cite: 3412]. And I think I'd like to point out to people that just because your your thyroid went kablooey and so did your pancreas, and and you had breast cancer, I don't know that that doesn't mean you're not a healthy person[cite: 3413, 3414]. Like, I wonder what everyone's expectation is about the process of life to death and what's supposed to, like, quotes, finger quotes, supposed to happen to you through that entire process[cite: 3415]. I think about that because I'm 54[cite: 3416]. So what am I? I'm a little older than you[cite: 3416]. Right[cite: 3417]?
Naomi You're a little younger[cite: 3417]. I'm 57[cite: 3417].
Scott Benner Oh, I'm sorry[cite: 3417]. Did the math wrong[cite: 3417]. Thank you[cite: 3418]. Finally, I'm younger[cite: 3418].
Naomi You're a baby[cite: 3418].
Scott Benner So there you are[cite: 3419]. You're 57[cite: 3419]. I'm 54[cite: 3419]. My son said to me, I don't know, a year ago, like, how many things have been wrong with you[cite: 3419]? He told me[cite: 3420]. Like, as I as I as I so, like, for instance, and I had to have my right knee cleaned out[cite: 3420]. Oddly, my the big toe on my right foot stopped bending, and, like, the guy had to go in there and, like, I don't know what he found, that he cleaned it up a little bit, did some microneedling and all this stuff[cite: 3421]. And it's been, like, a couple of years now, And I would tell you that it's odd that I'm having this conversation now because I'm not actually wearing shoes right now[cite: 3422]. But I couldn't I couldn't you know, can you make a fist with your toes[cite: 3423]? Right[cite: 3423]?
Scott Benner I couldn't do that with my right toe for, the first eighteen, twenty four months after the surgery, but I can now[cite: 3424]. Like, it was Interesting[cite: 3424]. Good idea to go get the surgery[cite: 3425]. It ended up being a great thing[cite: 3426]. Blah blah blah[cite: 3426]. Right[cite: 3427]? I've, had a carpal tunnel surgery because I injured my hand[cite: 3427]. I've you know, I use a GLP medication[cite: 3428]. I had to have, like, something, like, you know, throughout my life[cite: 3428]...
Naomi Like normal normal aging thing[cite: 3428].
Scott Benner I yeah[cite: 3429]. I had a I had a my shoulders are like, I had a motorcycle accident when I was a kid[cite: 3429]. I never got it fixed[cite: 3430]. I had to have, like, rotator cuff surgery, like, stuff like that[cite: 3430]. And my son looks at that and goes, holy hell, man[cite: 3430]. He's breaking all over the place[cite: 3431]. You know[cite: 3432]?
Naomi Yes[cite: 3432].
Scott Benner Yes[cite: 3432]. What I see is I see that, like, you're an expectation of getting to your grave without something like this going wrong in your meat sack that is rotting in front of you every day long[cite: 3432]. I just look at it as trying to stay ahead of father time[cite: 3433]. And Yes[cite: 3433]. Because if somebody said to me, are you healthy[cite: 3434]? I would say yes[cite: 3434].
Scott Benner You've probably heard me talk about US Med and how simple it is to reorder with US Med using their email system[cite: 3435]. But did you know that if you don't see the email and you're set up for this, you have to set it up[cite: 3436]. They don't just randomly call you[cite: 3437]. But I'm set up to be called if I don't respond to the email because I don't trust myself, a 100%[cite: 3437]. So one time, I didn't respond to the email and the phone rings at the house[cite: 3438]. It's like, ring, you know how it works[cite: 3439]. And I picked it up[cite: 3439]. I was like, hello[cite: 3439]? It was just the recording[cite: 3439]. It was like, US Med, doesn't actually sound like that, but you know what I'm saying[cite: 3440, 3441]. It said, hey, you're, I don't remember exactly what it says, but it's basically like, hey, your order's ready[cite: 3441]. You want us to send it[cite: 3442]? Push this button if you want us to send it[cite: 3442]. Or if you'd like to wait, I think it it lets you put it off, a couple of weeks or push this button for that[cite: 3443].
Scott Benner That's pretty much it[cite: 3444]. I push the button to send it, and a few days later, box right at my door[cite: 3444]. That's it[cite: 3445]. Usmed.com/juicebox or call (888) 721-1514[cite: 3445]. Get your free benefits checked now and get started with USmed[cite: 3445]. Dexcom, Omnipod, Tandem, Freestyle, they've got all your favorites[cite: 3446]. Even that new islet pump[cite: 3446]. Check them out now at usmed.com/juicebox or by calling (888) 721-1514[cite: 3447, 3448]. This episode is brought to you by Omnipod[cite: 3449].
Scott Benner Would you ever buy a car without test driving at first[cite: 3449]? That's a big risk to take on a pretty large investment[cite: 3450]. You wouldn't do that[cite: 3450]. Right[cite: 3450]? So why would you do it when it comes to choosing an insulin pump[cite: 3451]? Most pumps come with a four year lock in period through the DME channel, and you don't even get to try it first[cite: 3452]. But not Omnipod five[cite: 3453]. Omnipod five is available exclusively through the pharmacy, which means it doesn't come with a typical four year DME lock in period[cite: 3453]. Plus, you can get started with a free thirty day trial to be sure it's the right choice for you or your family[cite: 3454]. My daughter has been wearing an Omnipod every day for seventeen years[cite: 3455]. Are you ready to give Omnipod five a try[cite: 3456]? Request your free starter kit today at my link, omnipod.com/juicebox[cite: 3457]. Terms and conditions apply[cite: 3457]. Eligibility may vary[cite: 3457]. Full terms and conditions can be found at omnipod.com/juicebox[cite: 3458]. Find my link in the show notes of this podcast player or at juiceboxpodcast.com[cite: 3459].
Naomi You know, I'm glad you said that that because that's the perspective I'm trying to get to because I still do feel extremely healthy[cite: 3460]. I mean, I am I work out all the time[cite: 3461]. I'm a long distance runner and I'm still running, you know, and I ran through treatment[cite: 3462]. And I I part of me, 50% of me feels that I'm very healthy[cite: 3463]. I eat well, obviously, because I watch what I eat because of the diabetes[cite: 3464].
Naomi So I have that, but then I also have the fifty percent of me that's like, oh my gosh, got the thyroid issue[cite: 3465]. I have osteopenia, which many women my age get[cite: 3466]. I have breast cancer, I have diabetes, and I'm falling apart, I'm breaking down[cite: 3467]. So I go back and forth[cite: 3468]. I'm still feeling very healthy, but I do worry about the things that are happening to my body[cite: 3468]. But many people live very long fruitful lives, obviously, with type one diabetes and having survived breast cancer[cite: 3469]. So...
Scott Benner Yeah[cite: 3470]. Yeah[cite: 3470]. Well, I'm glad you're looking[cite: 3470]. I I understand your trepidation around, like, making the proclamation, but at the same time, I like that you're searching for it[cite: 3471]. I also did not mean to rhyme trepidation and proclamation[cite: 3472]. I very much apologize[cite: 3472]. I apologize to everybody for that[cite: 3473].
Naomi For a Monday morning[cite: 3473]. But I also wanted to mention that with with the diagnosis of the breast cancer, it really helped me to sort of be a little less obsessive with the diabetes numbers because I realized that as much effort as I put into managing my diabetes, here came this thing along that was so much bigger and that really was life threatening and that could could kill me[cite: 3474]. And so it really made sometimes when I hear people talk about diabetes, it's the worst possible thing that ever happened to them[cite: 3475]. Now I have this perspective of like, God, if I only just had diabetes, that would be awesome[cite: 3476]. So it is interesting how things happen in life and changes your perspective because you can you really can[cite: 3477]. If you are in control or have some, you know, good range of control with your glucose numbers, you can live well into your eighties and nineties[cite: 3478].
Insulin Administration and Running
Scott Benner You know[cite: 3479]? Yeah[cite: 3479]. There should be no issue with that[cite: 3479]. Well, okay[cite: 3479]. So you got to the point where you talked to that doctor into believing you needed insulin[cite: 3480]. And are you, like where are you in the, like, the LADA chain of command[cite: 3481]? Are you, like, in full need of insulin[cite: 3481]? Are you taking just [cite: 3482]
Naomi Oh, yeah[cite: 3482].
Scott Benner Yeah[cite: 3483]. Yeah[cite: 3483].
Naomi No[cite: 3483]. I'm I'm in full need now[cite: 3483]. In the beginning, I started with pens[cite: 3483]. You know, the first couple years, I used pens[cite: 3484]. And then I as I educated myself more, I realized, well, there's more I can be doing[cite: 3485]. You know, why don't why can't I give myself point five unit of insulin as opposed to a full unit[cite: 3486]? And then I started, you know, researching pumps and exploring the pumps[cite: 3487]. And and I knew, just given my lifestyle and activity level, I I knew that I didn't want one with a tube, although they're very successful for so many people[cite: 3488]. But I did go with the Omnipod[cite: 3489]. And, you know, I don't I don't take as much insulin as some other people because I do tend to eat a low carb diet[cite: 3489]. But there are times where, you know, I'm out to eat or wherever if I want dessert, you know, and I definitely you know[cite: 3490]? Yeah[cite: 3491]. But I typically don't have more than thirty units a day[cite: 3491].
Scott Benner Okay[cite: 3491]. Yeah[cite: 3491].
Naomi I mean Sometimes it's as low as, you know, ten units if I'm eating, you know, very low carb that day[cite: 3492].
Scott Benner How does the running affect your insulin needs[cite: 3493]?
Naomi The running is tricky because, you know, again, with diabetes, it's it's all about sort of decision, the management around, you know, okay[cite: 3494]. Well, when am I gonna do my run[cite: 3495]? Like, I typically wanna do it in the morning before I've eaten[cite: 3495]. But sometimes when I wake up in the morning, I have foot to floor syndrome or dawn phenomenon or whatever you call it that that makes me go up[cite: 3496]. So I tend to take it I might take a unit or two, when I wake up to just keep myself, you know, under one forty[cite: 3497]. But then sometimes, you know, when I go out for the run, I tend to drop lower when I run[cite: 3498]. So I wanna be you know, I'm always looking again at the number to make sure, okay[cite: 3499]. Well, I'd love to be around one twenty, one thirty when I start to go out for a run, but, you know, sometimes I'm not[cite: 3500]. Sometimes I'm sitting at 90, and then I drink some juice or I eat something[cite: 3501]. I always make sure that I have to have, I have a belt with me, that I always have snacks[cite: 3502]. I have, you know, the running pants or the running shorts where the pocket so I can always carry a juice box[cite: 3503]. You know[cite: 3504]? But, again, during a run, I do like to check my numbers because I don't, you know, I don't want one time, I I did go very, very low during a run[cite: 3504]. I just got distracted[cite: 3541]. I wasn't checking it, and I started to get that numb tingly feeling around your mouth that you get when you go very low[cite: 3505].
Scott Benner That's usually really low, right, for people too[cite: 3506].
Naomi And then I looked, and I was, like, 45 or something[cite: 3507]. And I'm like, oh my god[cite: 3507]. I can't believe I usually, I'm, you know, a little more on top of that when I'm running[cite: 3508]. So I do check it when I run because I like to make sure I'm not going low during a run[cite: 3509]. It's funny[cite: 3510]. I used to go high when I ran, and I think in the beginning, it was like my liver dumping glucose or something[cite: 3510]. I didn't know what it was[cite: 3511]. But from what I've read, you know, it could have been that[cite: 3511]. But now all the time, I tend to skew lower[cite: 3512]. So I like to try to eat something before I go or make sure I have food with me so that I can maintain, you know, a certain level[cite: 3513].
Naomi But there's, I don't know if you there's a woman I follow[cite: 3514]. I follow her on Instagram and TikTok, and she's she's a runner[cite: 3515]. And she's always, like, you know, saying what her numbers are during a run[cite: 3516]. And she I actually saw her run, and She was running in the New York City Marathon, and she was running for breakthrough t one d[cite: 3517]. And, you know, it's just inspirational that Yeah[cite: 3517]. She's able to do it, you know, with but so you can[cite: 3518]. You can do it[cite: 3519]. Well, you're doing it[cite: 3519]. Careful[cite: 3519]. Like, yeah, in marathons, when you have, like, gels and goos and things like that, I don't wanna have that because I don't wanna have to take insulin while I'm running, but I can take a little bit of it[cite: 3520]. If I'm if I'm on the lower side, you know, I can have a little bit of it[cite: 3521]. I can have, like, a sip or two of Gatorade[cite: 3522].
Scott Benner Yeah[cite: 3522]. No[cite: 3523]. I think I mean, I've interviewed a a handful of people who've done marathons[cite: 3523]. They always wanna come on the podcast, and I I always feel bad because my my inclination is always to ask them, like, why are you running so much[cite: 3524]?
Naomi I know[cite: 3525]. But but No[cite: 3525]. Again, it's like every marathon, I say, okay[cite: 3525]. This is definitely [cite: 3526]
Scott Benner the last one[cite: 3526].
Naomi I'm 57[cite: 3526]. Like, I cannot do this anymore in my body[cite: 3526]. But my kids are running it this year, and I wanted you know, just that you know, I'm so excited to do it with them and to have that opportunity[cite: 3527]. So I wanna go out on a high note running it with them[cite: 3528].
Scott Benner There was a woman on recently[cite: 3539]. Do you listen to the podcast[cite: 3541]?
Naomi Yes[cite: 3529]. Yes[cite: 3529]. Not not everyone, but, you know[cite: 3530]...
Scott Benner Well Was it [cite: 3530]
Naomi it wasn't Addy, was it[cite: 3530]?
Scott Benner Let me look[cite: 3531]. There's an [cite: 3531]
Naomi an Addy Taylor on[cite: 3531]?
Scott Benner No[cite: 3532]. Oh[cite: 3532],
Naomi she's the runner that I follow[cite: 3532].
Scott Benner I don't know why I can't seem to hook up with her, actually, because I think [cite: 3533]
Naomi Oh, she's Yeah[cite: 3533]. She's very fast too[cite: 3534]. She's I mean, she's a lot younger than I am, but she I think she runs, an eight, eight thirty pace[cite: 3534]. You know[cite: 3534]? I'm an old lady[cite: 3602]. I'm doing the old lady pace[cite: 3603].
Scott Benner Well yeah[cite: 3536]. Oh, episode seventeen thirty one[cite: 3536].
Naomi Okay[cite: 3536].
Scott Benner So let's see[cite: 3536]. Diagnosed forty nine years ago, Linda shares her philosophy on borrowed time and her incredible feat of running in seven marathons on seven continents in seven days[cite: 3537].
Naomi Oh, that's in seven days[cite: 3538]?
Scott Benner And she did it three separate times[cite: 3538].
Naomi Okay[cite: 3539]. What episode is that[cite: 3539]? Seventeen thirty one[cite: 3539]?
Scott Benner Seventeen thirty one[cite: 3539]. As you were talking, I thought, oh, I think Naomi would really like that[cite: 3540]. Yeah[cite: 3540].
Naomi Now that is impressive[cite: 3541]. That is impressive[cite: 3541]. I mean, I'm I'm a runner, but I'm not in that category of running[cite: 3541]. Because a lot of women wanted or a lot of people in general, runners, wanna run the world majors or they wanna run a marathon in every continent[cite: 3542]. But to do it in that short amount of time, I mean, I'm lucky if I can do one a year[cite: 3543]. You know[cite: 3544]?
Scott Benner Yeah[cite: 3544]. I don't listen[cite: 3544]. I've I I I jogged across the parking lot at the shop right the other day, and that was enough[cite: 3545]. I was good[cite: 3546].
Naomi K[cite: 3546]. And that's something[cite: 3546].
Scott Benner Yeah[cite: 3547]. I I was like, oh, let me get out of the way[cite: 3547]. You know[cite: 3547]?
Naomi Scott, you gotta start somewhere[cite: 3548].
Scott Benner Well, I started and stopped at the other side of the driveway[cite: 3458]. You know, I don't when when you're walking across the may I share a pet peeve[cite: 3549]? When you're walking from your car to the grocery store, please, first of all, let's not zigzag[cite: 3550]. Let's not go diagonally across where people are driving[cite: 3551]. And if your ass is in the way, hustle a little bit[cite: 3552]. You you know what I mean[cite: 3553]? Like, don't [cite: 3553]
Naomi look up pace[cite: 3553].
Scott Benner Yeah[cite: 3554]. Don't look up everybody and go, I see that I've walked in front of your car[cite: 3554]. You're all gonna have to I I I just try to I just try to pick up the pace a little bit[cite: 3555]. Yeah[cite: 3556]. Also, may I may I share[cite: 3556]?
Naomi Well, Scott, I'll give you a suggestion[cite: 3556]. Just park park further away from the entrance, and then you get more steps in[cite: 3557].
Scott Benner Park in the park[cite: 3557]. I'm not out of my mind, Naomi[cite: 3558]. No[cite: 3558]. I actually boy, I'll tell you what[cite: 3558]. I was my I'm sorry[cite: 3559]. My brother is in Wisconsin texting[cite: 3559]. It's still snowing three days later is what he just sent me[cite: 3560].
Naomi That's you know, I'm done with it[cite: 3561]. I'm over it[cite: 3561]. Me too[cite: 3561]. I'm in the Northeast too[cite: 3562]. So I we don't have snow right now, but it's chilly and cold [cite: 3562]
Scott Benner and And why did it start raining again[cite: 3562]? Like, horrible[cite: 3563].
Naomi My my son just ran the, my younger son ran the Napa Marathon, and I was out there[cite: 3563]. And I was just thinking, like, why don't I live out here[cite: 3564]? This is insane[cite: 3564].
Vigilance vs. Longevity Outlook
Scott Benner Okay[cite: 3564]. Beautiful[cite: 3565]. We'll get to that in a half a second[cite: 3565]. I just wanna share with you, I'm not sure if I'm mentally ill or I'm youthful, but I was at, I was at the grocery store recently[cite: 3566]. I can't believe I'm just gonna talk about the grocery store completely, but there were there just weren't many people in it[cite: 3567]. It was a little later at night, and I would, like kinda speed up a little bit and sort of jump up in the air and hold my body weight up on my cart and let the cart take me down the aisle[cite: 3568].
Naomi Oh, you are definitely useful then[cite: 3569].
Scott Benner And and, like and I and I'm like, oh, I and I did it[cite: 3569]. I was like, oh, that was awesome[cite: 3570]. So I do it more lately, like, when no one's in the aisle[cite: 3570]. I wanna be clear not when people are in the aisle, but when the aisle's clear[cite: 3571]. Right[cite: 3571]? And I always feel like this is, like, the secret thing I'm doing that nobody knows about[cite: 3572]. And then I realized it hit me one day[cite: 3573]. There are cameras all over that place[cite: 3573]. There is someone [cite: 3574]
Naomi Someone someone's [cite: 3574]
Scott Benner watching going, you[cite: 3574]. What is this person doing[cite: 3574]?
Naomi Yes[cite: 3574]. And you have to be careful[cite: 3575]. Right[cite: 3575]? Because you've had knee surgery and, [cite: 3575]
Scott Benner you know That'll be fine[cite: 3575]. But, like but I honestly, as I'm doing it, I thought I it actually it occurred to me later because I I went out in the parking lot[cite: 3576]. There's this, like, little dip in the parking lot[cite: 3577]. Like, you kinda go down a slight hill[cite: 3577]. And I'm like, why am I walking across the parking lot when I could ride the cart down here[cite: 3578]?
Naomi When I could [cite: 3579]
Scott Benner be So I driving[cite: 3579]. I did that[cite: 3579]. And then I got all I packed up and everything and, you know, gotten the got my car to leave[cite: 3580]. And I actually stopped for a second and thought, I wonder how many 54 year old people would do this[cite: 3581]. Like, is the and that's when it hit me[cite: 3582]. I was like, is this a positive thing about me, or is there something wrong with me[cite: 3583]? And I and I [cite: 3583]
Naomi Only little of both[cite: 3584].
Scott Benner Yeah[cite: 3584]. Right[cite: 3584]?
Naomi That's why But I but I love it because I I'm especially I mean, especially I I was always like this, but more so after a cancer diagnosis[cite: 3585]. You have to live life[cite: 3586]. You have to embrace every moment and find the joy where you can[cite: 3586]. Yeah[cite: 3587]. So why not do that[cite: 3587]? Yeah[cite: 3587]. Why not[cite: 3587]?
Scott Benner My mom passed away in her eighties from cancer, and it taught me a lot about the idea of, like, waiting till the end to do stuff[cite: 3588]. Also Right[cite: 3589]. As you bring it up, like, why are you not why don't you move to California[cite: 3589]? Why don't I I'm trying so hard to get my wish to go, like, south, like, to get it because warm[cite: 3590]. Yeah[cite: 3591]. Because it's terrible here[cite: 3591].
Naomi I know[cite: 3591].
Scott Benner Or and you have context for this[cite: 3591]. I I said okay to I'm doing this talk at Hofstra[cite: 3592]. And I gotta drive out on the island, like, on a Wednesday afternoon[cite: 3593]. And I'm just like the whole time, I'm like, why did I say yes to that[cite: 3594]?
Naomi Not fun[cite: 3034]. Not fun[cite: 3595]. Although people say the traffic in in, outside, you know, San Fran area is bad too[cite: 3595]. But, yeah, in in the metropolitan area, ugh, forget it[cite: 3596].
Scott Benner Yeah[cite: 3597]. But don't you think the weather would, like, stabilize that feeling for you[cite: 3597]?
Naomi I do[cite: 3597]. I say that to my husband all the time[cite: 3598]. You know, why don't we do this[cite: 3598]? But, you know, our kids are in New York[cite: 3599]. Wanna We be close to them[cite: 3599]. He said, you think Jersey is expensive[cite: 3600]? California is [cite: 3600]
Scott Benner Yeah[cite: 3601]. I I'm listen[cite: 3601]. I'm looking like I looked at Tennessee[cite: 3601]. First of all, Tennessee does not have income tax[cite: 3601]. That's a that's a thing[cite: 3602]. And secondly, people from Tennessee are probably like, please stay where you are[cite: 3602]. Leave us alone[cite: 3603]. But I but [cite: 3603]
Naomi I doubt that[cite: 3603].
Scott Benner But, like 45 I'm looking, like, in an hour radius, like, around, like, Nashville, for example[cite: 3604]. Property is just not nearly as expensive as it is here[cite: 3605].
Naomi Right[cite: 3605]. You [cite: 3606]
Scott Benner know, there's no way that [cite: 3606]
Naomi property tax is a lot lower[cite: 3606].
Scott Benner I you have no idea[cite: 3607]. I saw a house the other day, and I don't know what the house cost, $3,400,000[cite: 3607]. The property taxes were, like, $1,500 a year[cite: 3608].
Naomi It's crazy[cite: 3608]. My, someone that I I worked with that I talked with for many years, she moved down to she retired in New Jersey and moved down to Charleston, that area[cite: 3609]. And, her taxes are I think she pays something like $22,000 a year[cite: 3610].
Scott Benner Yeah[cite: 3610]. Yeah[cite: 3611]. If I ask people to tell you what you pay if you tell you what you pay No[cite: 3611]. People no[cite: 3611].
Naomi Don't do that[cite: 3612]. Don't do that to people[cite: 3612]. Exactly[cite: 3612].
Scott Benner Yeah[cite: 3612]. They'd pass out[cite: 3612].
Naomi Jersey, New York metropolitan area[cite: 3613]. It's really outrageous, but yet, you know, near the Jersey Shore[cite: 3613]. I'm near New York City, so I like those things[cite: 3614].
Scott Benner Yeah[cite: 3614]. I like them too, but I don't actually do any of those things[cite: 3615]. Although my kid did go to the the art museum the other day, and I did think, okay[cite: 3616]. Well, that's a good part about being here[cite: 3617]. But anyway okay[cite: 3617]. I wanna talk about your your diabetes care and your, you know Okay[cite: 3618]. Your assertion that you're, you know, very focused but found a little more leniency for yourself[cite: 3619]. So where did all that come from[cite: 3620]? Obviously, it's not coming from your endocrinologist[cite: 3620]. You did your own research[cite: 3621]. What did you go out and learn[cite: 3621, 3622]? How did learning that form and shape how you wanted to take care of yourself[cite: 3622]?
Research and Vocabulary Gap
Naomi Well, I do like to be on top of everything that's going on with my health[cite: 3240]. You know[cite: 3623]? And so I knew that I wasn't going to be a passive diabetic patient[cite: 3624]. I wanted to do everything within reason that I could do to, not have nondiabetic numbers, but to be within a healthy [cite: 3625]
Scott Benner Do your best[cite: 3301].
Naomi For for a diabetic[cite: 3626]. Right[cite: 3626]? So I started just, you know, following people on Instagram and, you know, hearing about different, like, book recommendations[cite: 3626]. Of course, you know, I read, you know, Healthy Kick Ass Lada, and I read, Think Like a Pancreas[cite: 3327]. I actually had to read that like many people do, like, two or three times because it it was very technical[cite: 3328]. And in the beginning, I didn't have the vocabulary, and I didn't really understand it until I started using insulin myself and became familiar with I was never even taught the word bolus[cite: 3329]. Didn't know what My diabetes educator never used that word[cite: 3330]. So when that kept coming up, I kept thinking, what is this bolus thing that everyone is talking about[cite: 3331]? So I had to learn all of this[cite: 3332]. And the more I learned, the more I wanted to know[cite: 3332]. And, you know, the latest research that's happening and, you know, obviously, learning about islet cell transplants and, you know, looking at clinical trials and things like that[cite: 3333].
Naomi And, you know, the latest research that's happening and, you know, obviously, learning about islet cell transplants and, you know, looking at clinical trials and things like that[cite: 3633]. So I really wanted to put myself in a position of knowledge so that I would be able to I realized early on that it wasn't going to be my endocrinologist[cite: 3634]. Like, the difference between diabetes and cancer is with cancer, I let my oncologist direct everything[cite: 3635]. She's the expert[cite: 3636]. This is cancer[cite: 3636]. This is a big deal[cite: 3636]. Whatever she tells me to do, I do[cite: 3637]. With the endocrinologist, I learned early on that I might know a little bit more than she does when it comes to dosing or the limits and the benefits of different types of pumps and things like that[cite: 3637]. I realized that early on[cite: 3638]. So I wanted to make sure that I educated myself and read everything that I could read and, you know, following certain doctors on on Twitter that are diabetes experts[cite: 3638]. You know[cite: 3639]?
Scott Benner Do you think your endo doesn't know, or do you think that the the way that the visits are set up doesn't allow for long conversation[cite: 3439]? Or [cite: 3440]
Naomi I think it's more that, that you're in and out in such a short amount of time[cite: 3640]. And she does defer to the diabetes educator in her office more so because I think that I don't know, you know, if it's her area of expertise or not, but I I I see her referring me to you know, oh, that's a question for the diabetes educator or ask the diabetes educator that, or we'll have her look at your numbers and, you know, tweak things if necessary[cite: 3641]. But but they're never the ones to tweak things[cite: 3642]. I'm always the one to tweak things[cite: 3642]. Like, I adjust my IC ratio[cite: 3643]. You know[cite: 3643]?
Scott Benner Does your educator have that knowledge[cite: 3643]? Do they seem more knowledgeable to than the endo to you[cite: 3644]?
Naomi Or Yes[cite: 3644]. I haven't[cite: 3644]. I just kind of stopped going because I feel like I'm at the point now where I do know I certainly know plenty enough to manage myself[cite: 3645]. You know, I don't know[cite: 3646]. It's hard to say, Scott[cite: 3646]. In the beginning, I don't think I got the best education from the diabetes educator[cite: 3647]. I was told to take a few units of insulin before meals[cite: 3648].
Scott Benner Mhmm[cite: 3648].
Naomi But I she didn't go into depth about insulin to carb ratio or count the carbs[cite: 3649]. And I I I literally just started taking three units of insulin with every meal regardless of what I was eating[cite: 3650]. And then I realized, wait[cite: 3651]. I'm dropping, like, really low[cite: 3651]. Like, what's and I called her, and she said, well, you have to you you know, it's based on the number of carbs you and maybe you know what[cite: 3652]? To be fair, it is possible that she did go over that with me, and I was too overwhelmed at the initial appointment to process it[cite: 3653]. So I don't wanna completely throw her under the bus[cite: 3654]. It could have been my [cite: 3654]
Scott Benner Right[cite: 3654]. Are you are you comfortable partially throwing her under the bus[cite: 3655]? Does it sound like a thing you would do, like, here that you have to count your carbs to measure your insulin and that you would ignore that[cite: 3656]?
Naomi Yeah[cite: 3657]. I don't know[cite: 3657]. And that's that's why I don't really go to her anymore because now I'm now I know enough where I can you know[cite: 3657]? Okay[cite: 3658]. Maybe I'm really not a one to 15 ratio anymore[cite: 3658]. Let me try going down to one to 12, you know, and see what that does[cite: 3659]. And I really like to I remember one podcast you talked about your daughter's management and correcting if she went above one twenty[cite: 3660].
Scott Benner Mhmm[cite: 3661].
Naomi And at at the time, I was still early on[cite: 3661]. I thought, oh my god[cite: 3661]. I would love to be at one twenty[cite: 3662]. Like, why would you correct them[cite: 3662]? But now, of course, I'll do, like, a micro correct you know, a little micro dose correction at that because I wanna stay under you know[cite: 3663]?
Scott Benner Yeah[cite: 3664].
Naomi I just you know, so I'm I'm a lot better at management[cite: 3664].
Scott Benner Are you using a manual pump[cite: 3665]? Like, are you using Omnipod dash[cite: 3665]?
Naomi I use no[cite: 3665]. I'm using Omnipod five[cite: 3666]. You are[cite: 3666]? I use it in auto mode because Jenny said to do that[cite: 3666].
Scott Benner Oh, wait[cite: 3667]. Wait[cite: 3667]. Manual[cite: 3667]?
Naomi No[cite: 3667]. Auto[cite: 3667].
Scott Benner You're letting it make its decisions[cite: 3667]?
Naomi Yes[cite: 3668]. Yes[cite: 3668]. But it doesn't it doesn't give me that much, I think, because I don't use that much insulin, like, throughout every day[cite: 3668]. It doesn't give me that much basal[cite: 3669].
Scott Benner Okay[cite: 3669].
Naomi You know, I'm mostly bolusing for it, but, like, just for fun, I'm, like, looking what I am right now[cite: 3670]. Like, I'm at 94, which is great, but I still have, like, one point five units in me from breakfast[cite: 3671]. So that's why I do like to manage it because I still have 1.5 units on board[cite: 3672].
Scott Benner You wanna pay it[cite: 3748].
Naomi I don't wanna go low, so I check it and, you know, I'll have whatever[cite: 3673].
Lifestyle Adjustments and Emotional Toll
Scott Benner Yeah[cite: 3674]. And you're the way you eat now is not different than the way you ate before diabetes, or it is[cite: 3674]?
Naomi No[cite: 3675]. No[cite: 3675]. It it's definitely different[cite: 3675]. It's definitely different[cite: 3675]. But it took me a long time to get there because I was a big pasta bread person[cite: 3676]. And and I still I do love that stuff, but I don't I definitely hardly ever eat that stuff only because for me, once in a while, if I'm at a restaurant, maybe I'll order pasta[cite: 3677]. But for me, it's just harder to dose for it because if you don't know the exact number of carbs, as you know, you know, it's just a little trickier[cite: 3678]. So I sometimes will do it[cite: 3679]. Like, I'll sometimes say, screw it[cite: 3679]. I'm just getting whatever I want[cite: 3679]. I'm gonna get the cake too for dessert[cite: 3680]. You know[cite: 3680]? And I'll estimate the the number of units or if I'm at a Mexican restaurant or something[cite: 3681]. You know[cite: 3682]? And then I end up with, like, taking twenty, twenty five units for the meal, and I'm still, like, either going low or high[cite: 3682]. And so to me, it's almost not worth the trouble because it sends me into a little bit of, like, an emotional I I don't like how I feel emotionally because I'm like, ugh[cite: 3683]. Got it[cite: 3684]. You know[cite: 3684]? I didn't get it right or something like that[cite: 3684]. So it's almost easier for me to stick to the things I know[cite: 3685]. You know[cite: 3685]? Like, always get like [cite: 3686]
Scott Benner Yeah[cite: 3686]. Naomi, you beat yourself up about it if it doesn't go [cite: 3686]
Naomi I do[cite: 3686]. I think [cite: 3687]
Scott Benner your age[cite: 3687]? You've been around a while[cite: 3687]. You don't know[cite: 3687]?
Naomi Yeah[cite: 3688]. No[cite: 3688]. I'm I'm experienced with it, and I know that it's not I know that sometimes it is a guessing game[cite: 3688]. But I think, you know, there are times where, okay, you know, pizza, you're gonna do an extended bolus[cite: 3689]. And I do the extended bolus, and sometimes it works and sometimes it doesn't work[cite: 3690]. So then I'm like, ugh[cite: 3691]. It's just easier not to eat the pizza[cite: 3691]. You know[cite: 3691]?
Scott Benner Yeah[cite: 3692]. I understand[cite: 3692]. I I just wondered, like, because you're you know, at your age, I thought maybe there'd be some more, I don't know, grace built in [cite: 3692]
Naomi Yeah[cite: 3693]. For you[cite: 3693]. Yeah[cite: 3693]. No[cite: 3693]. Well, that's that's the goal[cite: 3693]. I mean, I'm trying to do that every day[cite: 3694]. I'm trying to, like yeah[cite: 3694]. Like so some days, like, I know my range, I do a 70 to one forty range[cite: 3695]. I know that I'm not gonna be in a 100% range, like, every day all the time[cite: 3696]. Yeah[cite: 3696]. I would love to, but I don't I used to beat myself up if I was at, like, 90% in range[cite: 3697]. And now I don't do that at least[cite: 3698]. Now I'm like, 90% in range is awesome[cite: 3698]. You go, girl[cite: 3699]. You know[cite: 3699]?
Scott Benner How do you beat yourself up[cite: 3601]? Is it, like, is it unpleasant self talk[cite: 3700]? Of course in your mind[cite: 3700]? Do you [cite: 3701]
Naomi Well, it's a lot of, it's actually for me, it's more like, oh god[cite: 3701]. But, I'm so educated about this[cite: 3702]. Why didn't I get that dosing right[cite: 3702]? And then it's also even though I know this is an irrational fear, I worry about long term side effects from spiking too high even though rationally, I know that that is not gonna affect my life unless I'm high, you know, above 200 all the time [cite: 3703] Which is such a rarity[cite: 3703]. You know[cite: 3704]? So as much self talk as I do to that's negative, I'm trying to do a lot more self talk that's hey[cite: 3704]. Listen[cite: 3705]. Sometimes you hit it, and sometimes you don't, and it's okay[cite: 3705]. Yeah[cite: 3705]. I'm not gonna have long term side effects, you know, because I spiked to two fifty one day for an hour[cite: 3706].
The Parenting Journey and Adrenaline Spikes
Scott Benner My journey[cite: 3707]. My god[cite: 3707]. I just I I tried so hard to find a word that wasn't journey, by the way, just now[cite: 3707]. But but but I guess my personal journey through all this from, you know, Arden being two and newly diagnosed to her being you know, this summer will be 22[cite: 3708]. So Arden's Arden's gonna have diabetes for twenty years in July[cite: 3708]. And [cite: 3709]
Naomi And how is she doing with it[cite: 3709]?
Scott Benner You know, really well[cite: 3709].
Naomi And she she manages herself now[cite: 3710].
Scott Benner Yeah[cite: 3710]. Yeah[cite: 3710]. I mean, I I'd say, like, ninety eight percent[cite: 3711]. Like, there's times, like, I know, you there's times I'll I got a text the other day while she was running around trying to get out the door for for class, and she's I just got a text, it just said, please come fill a pod for me[cite: 3712]. And I and I was like, okay[cite: 3713]. Like, stuff like that[cite: 3713]. Or Yeah[cite: 3713]. Like, once in a while, like, she when she goes out and spends the night somewhere else, she takes just this little, like, bag she takes with her with all of her stuff in case she needs something[cite: 3714]. She's like, I need you to pack my bag or something[cite: 3715]. Yes[cite: 3715]. My point is that from it's been it's been a ride[cite: 3716]. You know what I mean[cite: 3716]? Yeah[cite: 3717]. And I don't think it I don't think it's over yet[cite: 3717]. But Yeah[cite: 3717].
Scott Benner From, like [cite: 3718]
Naomi And and it's exhausting[cite: 3718]. It's the it's the fatigue of the constant decision making really, you know, cannot be understated, I don't think[cite: 3718].
Scott Benner I have to tell you[cite: 3719]. I mean, I just I had some thoughts the other day about that[cite: 3719]. I'll share as I'm going through this[cite: 3720]. But, like, you know, from when from two years old, you're like the abject horror and shock[cite: 3720]. Right[cite: 3721]? And then they're like, oh god[cite: 3721]. I'm gonna kill her[cite: 3721]. Like, that thing[cite: 3721]. Then the recognition that, like, I don't know what's going on[cite: 3722]. Like, I say to people all the time, like, I didn't have a podcast to listen to[cite: 3723]. Like, I didn't know what was I Yeah[cite: 3724]. I didn't know what was going on[cite: 3724]. Right[cite: 3724]? And then you're looking at the higher a one c's, eight's, nine's[cite: 3725]. You look at the doctor, you realize, they don't I don't think they're gonna be helpful[cite: 3726]. You know[cite: 3727]? So then you gotta figure out on your own, you know, for me, figuring out on your own, I don't know what it says about me, but I didn't go exterior of this house figure it out[cite: 3727]. I'd I'd I'd turned to, like, you know, experimenting with things, figuring stuff out[cite: 3728]. Luckily, a CGM came, helped me along[cite: 3729]. Getting onto a pump was nice, but, like, not not exactly, like, you know, a big shift to the the care[cite: 3730]. It was more about the way you care for it[cite: 3731].
Naomi Mhmm[cite: 3731].
Scott Benner And then she starts to get older and has every, you know, concern issue that you can imagine, you know, trying to manage and, like, all the stuff that comes with growing and getting older and[cite: 3731, 3732]...
Naomi Being a teenager, being a younger girl[cite: 3732].
Scott Benner Son really or father daughter relationships, like, the whole thing[cite: 3733]. She gets hypothyroidism at some point[cite: 3733]. That adds to the problem[cite: 3734]. All the way up to, you know, in the last couple of years, she's really developed, like, an aversion to needles[cite: 3734]. So, like, like, all that stuff, like, everything from there to here and all that in between Yeah[cite: 3735]. And thinking you're doing well personally when you're not and not realizing it[cite: 3736]. So Right[cite: 3736]. I mentioned earlier, like, you know, like, a couple of my medical things, but, like, one of them is that I use a GLP med now[cite: 3737]. I probably have for nearly three years[cite: 3737]. Right[cite: 3738]?
Naomi Mhmm[cite: 3738].
Scott Benner And I've lost about I I think at my at my biggest number, lost about 70 pounds[cite: 3739]. I seem to have kinda, like, gone back to about 65[cite: 3740]. Like, it seems to be where my body is sitting at for lack of a better way of saying it[cite: 3740]. I never thought of myself as a heavy person[cite: 3741]. I I don't really know another way to explain that[cite: 3472]. And and [cite: 3472]
Naomi Mhmm[cite: 3742]. Mhmm[cite: 3742].
Scott Benner Even so much so is that when I started losing weight, I think I had lost, like, my first 15 pounds[cite: 3743]. My son was living in Atlanta at the time for his, like, first adult job[cite: 3744]. And we went to visit him, and I remember walking in the door of his apartment and just being like, I can't wait for him to look at me and go, oh my god[cite: 3745]. No[cite: 3746]. My dad's lost weight[cite: 3746]. And after, like, an hour or so realizing this was not happening, and I and I said to him, I'm like I'm like, maybe this is just a boy thing[cite: 3746]. I'm like, how am I looking[cite: 3747]?
Naomi Have you noticed anything[cite: 3747]?
Scott Benner Yeah[cite: 3747]. Yeah[cite: 3747]. Yeah[cite: 3747]. Like, it now is a good time to say that I look like I've lost weight[cite: 3748]. And he goes, oh, I have you[cite: 3748]? And then we had, like, a real conversation[cite: 3749]. He said, I don't think of you as a fat person, he said[cite: 3750].
Naomi How interesting[cite: 3750].
Scott Benner Yeah[cite: 3751]. And then I looked back at some pictures over, you know, time Mhmm [cite: 3751] and realized that I was not a person jumping in front of cameras a lot[cite: 3752]. And then my wish pulled up a photo of us, I think, at my son's, like, senior day baseball game in college, and I am so fat in that picture[cite: 3753].
Naomi Probably yeah[cite: 3754].
Scott Benner I had no idea[cite: 3754]. And and I haven't gotten the nerve up yet to ask my wife, and I hope Arden never hears this one[cite: 3754]. But I haven't gotten the nerve up yet to ask my wife, how much of what happened to us do you think is the stress from Arden's diagnosis[cite: 3755]?
Naomi Yeah[cite: 3756]. Yeah[cite: 3756].
Scott Benner And how much of it was just how we are or what we are Yes[cite: 3756]. Whatever[cite: 3757].
Naomi Right[cite: 3757]. Right[cite: 3757]. And just lifestyle lifestyle or what you eat and things like that[cite: 3457]. But I no[cite: 3758].
Scott Benner I sleeping[cite: 3758].
Naomi I think right[cite: 3758]. The diabetes and I one thing I do wanna say is it is hard enough managing this disease as an adult managing myself[cite: 3759]. I give so much credit to all the parents out there[cite: 3760]. I cannot even imagine[cite: 3760]. You know, I'm checking getting up in the middle of the night or my alarm goes off in the middle of the night[cite: 3761].
Naomi I cannot imagine, you know, having that responsibility of I give you so much credit for doing that, you know, for so many years[cite: 3762]. And I do think, like, lack of sleep, worrying about that, the decision fatigue, and all of that, and the stress, I'm sure that it has an impact in some way[cite: 3763]. I mean, you know, it probably impacts different people in different ways, but I think you had her on, what what's her name[cite: 3764]? Bain's mom[cite: 3765]? Bain[cite: 3765].
Scott Benner Yeah[cite: 3765]. Mar Marley[cite: 3765].
Naomi I love her love them[cite: 3765]. Yeah[cite: 3766]. I love them[cite: 3766]. And, like, first of all, the fact that, you know, she puts it all out there, not only does it educate in the same way that you have done[cite: 3766]. I mean, it is educating so many people and teaching so many parents, you know, what to do, how to live like this, and, you know, normalizing it to some extent[cite: 3767].
Naomi But but what she goes through and with a little baby toddler like that and what you went through and all parents who have, you know, type one kids, it is cannot be easy[cite: 3768]. You know[cite: 3769]? And [cite: 3769]
Scott Benner I'm gonna have to talk about this somewhere in more in more like [cite: 3769]
Naomi stress like, that it sounds like you're coming out of it now[cite: 3769].
Scott Benner I swear to you, like, I just I looked at that photo and I thought that can't be me[cite: 3770]. And then I realized, like, that's probably how I was a large part of the time[cite: 3771]. And I swear to you, if you would have come up to me and said, hey, Scott[cite: 3772]. Tell me you know, be be honest and tell me about your weight right now[cite: 3773]. I would have said something like, yeah[cite: 3773]. I could I should probably lose 20 pounds[cite: 3774].
Naomi Mhmm[cite: 3774].
Scott Benner And if you said, are you fat[cite: 3774]? I would have said, no[cite: 3775]. No[cite: 3776]. I'm just like, I just need I I didn't[cite: 3776]. Like, you can't see it[cite: 3776].
Naomi Did you feel unhealthy[cite: 3777]? Did you [cite: 3777]
Scott Benner feel Yeah[cite: 3777]. But you make excuses for everything[cite: 3777]. You know, like, had, what's that[cite: 3777]? I had, plantar fasciitis[cite: 3778].
Naomi Mhmm[cite: 3778].
Scott Benner Right[cite: 3778]? Really bad[cite: 3779]. Like, terrible[cite: 3779]. And you think, like, oh, what's wrong with my heel[cite: 3779]? And now I realize, like, what's wrong with my heel is that I was carrying around 70[cite: 3779].
Naomi Was it weight[cite: 3779].
Scott Benner Yeah[cite: 3781]. Yeah[cite: 3781]. Yeah[cite: 3781]. But I at the time, I didn't think about that[cite: 3781]. I wonder how much of my knee having to get cleaned out was that[cite: 3782]. All that other stuff[cite: 3782]. And, yes, my back hurt like crazy all the time[cite: 3783]. My lower back was and I just said, oh, I've my back's always hurt[cite: 3784]. And, you know, like, just all these different things[cite: 3785]. And I don't know[cite: 3785]. And then, you know, it's funny[cite: 3785].
Scott Benner I think that there's also times that my weight wasn't as whatever it was when I saw that photo[cite: 3786]. In those times, you're probably a little more active[cite: 3787]. Those are probably times where you find yourself a little more in front front of a camera[cite: 3788]. So then you remember yourself in the pictures where you look or you take a photo from a great angle, and then, like, that's how you think of yourself all the time[cite: 3789].
Naomi I think that you have a point because there's definitely this part of, you know, type one diabetes management that that people don't see where it is the you know, sort of like this overwhelming sense of, you know, you're managing stuff all the time and you're making decisions[cite: 3790]. And for a parent, you're worried about your daughter[cite: 3791]. So you're you have that sort of this, like, background noise all the time, and I I definitely think that can impact your health [cite: 3792] and weight and all that kind things[cite: 3792].
Remote Dosing, Algorithms, and the Uncoupling Phase
Scott Benner Worries not Yeah[cite: 3793]. Is boy, worry[cite: 3793].
Naomi Like, coming coming out of this now with Barden being a young adult, you know, you will be moving into a different phase where it really is her her deal and hers like, you know, will it free up, like, that mental space in your head and, you know, you'll have, you know, all of this other [cite: 3793]
Scott Benner Well, I'm gonna say no, probably[cite: 3793].
Naomi But you always worry about your kids, but the diabetes aspect is a whole other[cite: 3794].
Scott Benner Well, I I mean, it's nice to say, but let me tell you this as a great example[cite: 3794]. Right[cite: 3795]? Last night, I told you when we first got on, like, I slept in this morning because I was up in the middle of the night[cite: 3795]. So last night, I don't know, around 03:15 in the morning, I've woken up by something[cite: 3796]. I'm like, what was that[cite: 3796]? You know[cite: 3797]? And Mhmm[cite: 3797]. It's Arden's blood sugar[cite: 3797]. Mhmm[cite: 3797]. And it's going up[cite: 3798].
Scott Benner And she's at the end of a pump, and I think to myself, like, if I was when I thought it was, even at 03:15, back in the day, I never would have let her go to bed with this pump on[cite: 3798]. Right[cite: 3799]. I would've said, hey[cite: 3799]. We're gonna change your pump before you go to Right[cite: 3799]? But she's trying to ride it till the end[cite: 3800]. It's different[cite: 3801]. I'm not telling her what to do[cite: 3801]. Blah blah blah[cite: 3801]. So I [cite: 3801]
Naomi hate to waste the insulin[cite: 3801].
Scott Benner No[cite: 3802]. Trust me[cite: 3802]. I don't care about that part[cite: 3802]. I care about the control part[cite: 3802]. And it's an old site, and I I see it not working well at the very end here[cite: 3803]. And I would have swapped that pump before she went to bed, but she didn't[cite: 3804]. That's fine[cite: 3804]. It's three fifteen[cite: 3805]. I'm seeing a one forty diagonal up number[cite: 3805].
Naomi Mhmm[cite: 3805].
Scott Benner And I think, at first, I guess I'm tired[cite: 3806]. I don't think of it at all[cite: 3806]. It probably just hits me the algorithm will take care of it[cite: 3807]. But then 03:30 comes around and I realize it's one sixty five[cite: 3808]. And I go, okay[cite: 3808]. So I pick my phone up and I can still, like, remote bolus, like, because, you know, walking into her room when she's 21 is weird[cite: 3809]. You know[cite: 3810]? And I tried very hard not to do that[cite: 3810]. I looked at what the the algorithm had been doing[cite: 3811]. I reset a slightly lower target to make it more aggressive, and then I I put some insulin[cite: 3812].
Scott Benner And after I put the insulin in, I thought, I don't think that was enough[cite: 3813]. But I don't wanna be too aggressive because [cite: 3813]
Naomi Right[cite: 3814].
Scott Benner She really does take care of this on her own, and maybe I should just go wake her up and blah blah blah[cite: 3815]. But I just anyway, I put in the little bolus[cite: 3816]. Twenty minutes later, I was like, that wasn't enough[cite: 3817]. I put in a little more, and thirty minutes later, I was like, this isn't gonna do it[cite: 3818]. I made one larger bolus, like, don't know, like a unit and a half or something like that[cite: 3819]. Like, you know, larger compared to the first one[cite: 3820]. And I did get on top of it, and I did get her blood sugar back down to, 95[cite: 3821]. And then I went back to sleep at 05:30 in the morning[cite: 3821].
Scott Benner And I was, like, sitting there trying to be busy[cite: 3822]. I was actually doing stuff for the podcast[cite: 3822]. I made this great I I think I decided on a new, series to make with Jenny[cite: 3823]. Like, I was doing a bunch of stuff, but I wanted to be asleep because I'm old[cite: 3824]. I can't be up in the middle of the night like this anymore[cite: 3825]. Yeah[cite: 3825]. Right[cite: 3825]?
Scott Benner So now I'm a little lucky[cite: 3826]. I didn't I wasn't recording with you until eleven[cite: 3826]. I just opened up my phone and pushed my alarm way back, and I thought, I'll I'll make this sleep up in the morning[cite: 3827]. But most people do not have that luxury[cite: 3828]. And, you know, like, most people can't just say, well, I'm just not gonna get up in the morning[cite: 3828]. Yeah[cite: 3829]. My I have a weird job[cite: 3829]. You know[cite: 3830]? What I realized is that once I was up and I saw her blood sugar rising, I couldn't just go back to sleep and let it keep going up[cite: 3830]. Like, I wasn't gonna be able to do that[cite: 3831]. Yeah[cite: 3831]. I mean, it just seems unreasonable not to do something about it[cite: 3832]. Knowing the situation the pump was in, end of us I I this isn't Yeah[cite: 3833]. It's not gonna work[cite: 3834].
Naomi Up[cite: 3834].
Scott Benner Yeah[cite: 3834]. So she gets up this morning, and the shower lately has been making her blood sugar rise[cite: 3835]. So she gets up in the morning, and I think if I was in charge, I would definitely change that pump before she got the shower[cite: 3836]. So she was getting, like, fresh from that, and I'd put in a bolus[cite: 3837]. But she's not gonna do that, and I don't look because this is the part where she's gonna have to figure it out[cite: 3838]. She actually [cite: 3838]
Naomi said say now she's at the age where, you know, I don't know how she felt about you, you know, being on top of managing her diabetes[cite: 3839]. You know[cite: 3840]? You had to be when she was very young[cite: 3840]. But as she got older, did she did she look at it as sort of like, oh, thank goodness[cite: 3841]. Someone else is managing this for me, or was she, you know, even, like, through her teenage years, oh god[cite: 3842]. I can do this by myself, dad[cite: 3843].
Scott Benner No[cite: 3843]. She was good right up until, like she was fine with it[cite: 3843]. I would say, like, her second year of college, we started to, like, separate even more[cite: 3844]. I mean, we had been slowly separating over time, which was the plan[cite: 3845]. But a better second year of college, it was the first time I got like that[cite: 3846]. I'm an adult[cite: 3847]. And I was like, oh, okay[cite: 3847]. Yeah[cite: 3847]. Because I thought you were 19, but whatever[cite: 3848].
Naomi Right[cite: 3848]. Is that hard for you to give up the control[cite: 3849]?
Scott Benner What did Gwyneth Paltrow do to that poor man in that band[cite: 3850]? Did she thoughtfully uncouple from him or something like that[cite: 3851]?
Naomi Did Oh, right[cite: 3851].
Scott Benner When she said that, she's like, we're thoughtfully uncoupling up uncoupling[cite: 3851, 3852].
Naomi Yeah[cite: 3852]. You're thoughtfully uncoupling[cite: 3852].
Scott Benner Yeah[cite: 3853]. Yeah[cite: 3853]. Yeah[cite: 3853]. So what so we were doing that, right, you know, and have been doing that for, you know, to the point where we're not really I'm not that involved, like, the day to day anymore[cite: 3853]. But Yeah[cite: 3854]. I watched this morning go exactly the way I knew it was gonna go[cite: 3854].
Naomi Mhmm[cite: 3855].
Scott Benner And my hope is is that she is now gathering the same data that I was gathering back in the day and that she will come to the same Yes[cite: 3855]. Or or similar, you know, conclusion that I came to[cite: 3856].
Naomi She probably will because she grew up with you as her dad, and she, [cite: 3857] you know, was able to have that advantage of learning from you know[cite: 3857]?
Scott Benner Because of all that, if I don't stop her from getting high overnight, she's not gonna stop it[cite: 3858]. She isn't waking up[cite: 3859]. Yeah[cite: 3859]. And this morning, because of just because of the order she did things in this morning, her blood sugar popped up over 200[cite: 3859]. Now I've seen I can tell she's already changed the pump, and she's put in insulin, and it's gonna come back down, and she's gonna be fine and everything[cite: 3859]. But, like, those are those little things, like, I don't think she knows yet the value of stopping that 200 from ever happening[cite: 3860].
Naomi Mhmm[cite: 3861].
Scott Benner Not that it's a problem one time[cite: 3861].
Naomi Right[cite: 3861].
Scott Benner But if it's happening every three days, then there's a value in changing your structure, like, how you structure your time[cite: 3862]. I a 100% believe she's gonna do it[cite: 3863]. But Yeah[cite: 3863]. She's I'm watching her go through it right now, and it's interesting because you probably one of the reasons I asked you earlier, like, you know, you're older[cite: 3864]. Why don't you know not to not beat yourself up[cite: 3865]?
Naomi Right[cite: 3865].
Scott Benner And I look at her, and I realized that what she's doing right now is she's trying to find she's trying to find the way she does it, and she's trying to make it work within her life[cite: 3866].
Naomi Yeah[cite: 3867]. And she's still early on in being independent about it[cite: 3867].
Scott Benner So For sure[cite: 3867]. Yeah[cite: 3849]. Yeah[cite: 3849]. So I don't I'm not I'm not at all, like, I wanna And [cite: 3868]
Naomi she and she also she's at the age where she should be she has a lot of other stuff going on, and she should be living her life and not constantly thinking about diabetes like some of us[cite: 3868].
Scott Benner And that's the balance balance[cite: 3869]. That we're striking right now is that I see that listen[cite: 3869]. I'll say over and over again[cite: 3870]. In college, 21, managing it herself, somewhere between, like, a six three and a six seven usually she stays[cite: 3870]. I think that's awesome[cite: 3871]. Like, I've just I've interviewed too many too many young women in college who were like, I don't know[cite: 3871]. I was an eight or a nine or a 10 or 11[cite: 3872]. I wasn't even paying attention[cite: 3872]. I don't know[cite: 3873]. Like, I think this is a crazy win[cite: 3873]. And I do think she'll get back to it, but she called it the other day[cite: 3874]. Something was happening the other day, I was like, hey, Arden[cite: 3875]. Like, I don't mean to be in your business[cite: 3876]. I was like, but please take a look at this[cite: 3877]. You know what I mean[cite: 3877]?
Scott Benner And she said, dad, this is my health journey[cite: 3878].
Naomi Wow[cite: 3878].
Scott Benner And I was like, she's got such a sarcastic sense of humor that I couldn't tell if she was fucking with me or if she [cite: 3879]
Naomi mocking you[cite: 3879].
Scott Benner Yeah[cite: 3880]. Your yeah[cite: 3880]. Or or if she really feels that way[cite: 3880]. And what I I kind of left the moment with was thinking, I think it's a little bit of both[cite: 3881]. Like, I think she's uncomfortably making fun of it, but she does mean that[cite: 3882]. Like, she means I'm trying to figure this out[cite: 3883].
Naomi And she's learning as she goes[cite: 3883].
Scott Benner And I think she's doing terrific[cite: 3884]. Like, if she hears this as later in life, you know, Arden, I thought you'd I thought you were doing terrific the whole time you were doing it[cite: 3884]. So,劇 there's still little stuff[cite: 3885].
The Disconnect in National Guidelines
Naomi Can I, I know our time is up, but I just wanted to ask you two things because I'm so I feel so fortunate to get to talk to you[cite: 3885]? I've listened to you for so long[cite: 3886]. You've done such good in the diabetes community about just teaching people about how to manage their diabetes in a very in-depth, intentional way[cite: 3887]. So thank you for that[cite: 3888]. But I wanted to ask you, why is it that you know, the American Diabetes Association will say, you know, you're fine, between, you know, 70 and one eighty[cite: 3888]. Like, that's the range you should be aiming for[cite: 3889]. You know, 6.4, like a one c, you're okay as long as you're under seven[cite: 3890].
Naomi And other experts in the diabetes field are like, no[cite: 3891]. You should aim for nondiabetic numbers or you should be, you know, under you you should have, like, a 5.5 a one c[cite: 3892]. You know[cite: 3893]? Why why is there this, like, disconnect[cite: 3893]? You know[cite: 3893]? Because sometimes you don't know what to follow[cite: 3894]. I kinda wanna follow, you know, the guidelines of being a little more lax and and thinking, like, I've gotta live a long healthy life, but yet you have this other group contingent of peep you know, guessing contingency of people saying, you know, you've gotta be, you know, below six a one c, you know, and I don't know[cite: 3894]. What what are your thoughts on that[cite: 3895]?
Scott Benner You know[cite: 3895]? No one's invited me into a meeting to talk or to listen to what they're thinking[cite: 3896]. But my from the outside and at the risk of sounding like a, you know, a prepper who's, you know, building a coffee table out of, dried dry good foods, I don't think I'd be looking for an institution to tell me how to take good care of myself[cite: 3897].
Naomi Mhmm[cite: 3897].
Scott Benner And I don't think it's because they have bad, intentions[cite: 3898]. I think they probably make a decision that we're gonna say something that will most reasonably capture as many people as possible[cite: 3899].
Naomi Right[cite: 3900].
Scott Benner And people who are, like, consistently above 200 if you can get them below one eighty all the time[cite: 3900]. What a joy that would be for them[cite: 3901]. Yeah[cite: 3901]. Right[cite: 3901]? Right[cite: 3901]? And so they're not speaking to you one at a time[cite: 3902].
Scott Benner Mhmm[cite: 3903]. So I think they look at the technology[cite: 3903]. They probably talk to doctors[cite: 3903]. I mean, what do you see in your practice[cite: 3904]? What are people capable of[cite: 3904]? And talk and I think the problem is they're talking about us as an amalgam[cite: 3905]. Mhmm[cite: 3905]. So what can we expect the populace to do[cite: 3906]? I think they could handle 70 to one eighty[cite: 3906]. And there are gonna be people that can't handle it, and they'll they'll drift out on the high side, and their health will go the wrong way that way[cite: 3907]. And there'll be people who can handle it, who, I guess, they're hoping will do what you did and learn more about it and and go towards a lower, you know, more stable number[cite: 3908].
Naomi Mhmm[cite: 3909].
Scott Benner I just think it's a limitation of, I don't know, of of [cite: 3909]
Naomi Trying to meet the masses[cite: 3953].
Scott Benner Yeah[cite: 3910]. Yeah[cite: 3910]. Right[cite: 3910]. Just I how are you supposed to do that[cite: 3910]? And Mhmm[cite: 3910]. I do also think that it's a disservice to do that to people Mhmm [cite: 3911] because, you know, why are we least common denominating people's health, you know, and saying, look[cite: 3912]. There are gonna be some people who can't maintain a one eighty blood sugar[cite: 3913]. We don't want them to feel bad or whatever else they're concerned about there[cite: 3914]. At the expense of a person like yourself who I think pretty clearly can keep an a one c in the fives if they want to[cite: 3915].
Scott Benner Mhmm[cite: 3916]. Why put that pressure on you that maybe you're working too hard and you don't need to be[cite: 3916]?
Naomi Yeah[cite: 3917]. That's what I'm trying to figure out[cite: 3917]. Right[cite: 3917]? Like, am I working too hard[cite: 3917]?
Scott Benner Because I see those conversations online all the time[cite: 3918]. People are they'll say, well, there hasn't been any study that proves that having an a one c, a blah blah blah, this low, is it any valuable[cite: 3919]? And I'm like, well, they how are they gonna study that[cite: 3920]? Right[cite: 3920]. Like and so saying there hasn't been a study doesn't make it it doesn't make it a fact either[cite: 3921]. Like, you don't know[cite: 3922]. And I'm gonna tell you they don't know either, and no one knows[cite: 3922]. So my opinion always is if I can't substantiate it, if God can't come down himself or herself and say, if you have a 6.5 a one c your whole life, you're absolutely gonna be fine[cite: 3923]. It's not a problem[cite: 3924]. Then why would I not on the side of caution and push for a lower a one c Mhmm [cite: 3924] or more time in range or a tighter range, a lower tighter range, or whatever[cite: 3925]. Like, that's a pretty big coin flip you're taking there[cite: 3926]. Because the day you find out it's not okay, you don't get to jump in a time machine and go back and do it again[cite: 3927]. You're you're now stuck with whatever outcome comes[cite: 3928]. And so so that's, you know, much like everything else in life[cite: 3928]. You're it's a risk reward[cite: 3932]. You're you have to weigh it on your own and decide how much effort am I gonna put in, and is some of that effort gonna be wasted, or am I gonna you know, or is it gonna work out for me[cite: 3929]? Or by the way, can I keep a five five a one c and still something goes wrong[cite: 3930]?
Naomi You could get cancer[cite: 3950].
Scott Benner Well, if you're yeah[cite: 3932]. And if you're so if you're looking for if you're looking for, promises, I would say this life thing's probably not for you[cite: 3932].
Naomi Yeah[cite: 3933]. Right[cite: 3933]. That's a good perspective[cite: 3933]. Yeah[cite: 3933]. Yeah[cite: 3933]. Yeah[cite: 3934].
Clinical Trials and Technical Limitations
Naomi And then my last question is that, you know, now I'm interviewing you, but I I just am curious about your thoughts[cite: 3934]. You know, obviously, with all of this news about, you know, islet cell transplants and, talk of a cure and all of that, and I don't wanna be on the, I think a cure is around the corner if it's really not[cite: 3935]. Where do you fall on that spectrum[cite: 3936]? I mean, I'm hopeful and obviously a lot of the research out there and the clinical trials with the people that are off insulin now, you know, it's it's wonderful[cite: 3936]. But do you think that that is going to be something that's available to the masses, like, in our lifetime, around the corner[cite: 3937]? Forget about it[cite: 3938]. What are what are your thoughts about that[cite: 3938]?
Scott Benner Let me tell you a story that I think is gonna highlight how I feel about this[cite: 3939]. First, I'll tell you that, I think it's really great[cite: 3940]. I mean, it's fantastic[cite: 3940]. And I'm looking on my schedule right now to tell you that I believe where is it at[cite: 3941]? Maybe three weeks from now, I'm interviewing the lead researcher [cite: 3942] for that thing[cite: 3942].
Naomi Oh[cite: 3942].
Scott Benner For that thing[cite: 3942].
Naomi Doctor with Wittowski[cite: 3943]. Wittowski[cite: 3943]? Oh, oh, good[cite: 3943].
Scott Benner I already had Katie Hand on[cite: 3943].
Naomi Katie on[cite: 3944]. I listened to that one[cite: 3944]. Mhmm[cite: 3944].
Scott Benner And, I mean, exciting stuff about, you know, the that Tego [cite: 3945]
Naomi Tego Pruvart[cite: 3945].
Scott Benner Yeah[cite: 3945]. The immune suppressant drug and all that stuff[cite: 3946]. I think that's all very exciting[cite: 3946]. And I think for Katie and the other people, like, there's some guy, like, number eight or something like that online[cite: 3947]. He's like, hey[cite: 3948]. They just sent him back and gave him more cells, and I guess he's not using insulin[cite: 3948]. That is super exciting for him[cite: 3949]. Yeah[cite: 3949]. You you know[cite: 3949]? I also think you had to really listen to Katie when she said that she was lucky to be Part [cite: 3950]
Naomi of that trial[cite: 3950].
Scott Benner A viable candidate for that trial[cite: 3950]. So imagine how many people that said they wanted to be in it and they did some testing and went, sorry[cite: 3952]. It's not for you or at least at this time[cite: 3953]. Also, it's not FDA approved[cite: 3953]. It's not like it's I mean, it's it's they're, like, trying to it's a proof of concept at this point, and it seems Yeah[cite: 3954]. Very, very exciting[cite: 3955].
Scott Benner I agree with you[cite: 3955]. Having said that, I one day took out my recycling the way I had taken it out for years and years and years, and the truck went down the street and didn't take half of it[cite: 3956]. And I called the municipality, and I said, why in the hell did they just take some of my recycling and not all of it[cite: 3957]? We talked it through, and she said, oh, you still using that blue container[cite: 3957]? And I said, yes[cite: 3958]. She goes, we're not picking up the blue containers anymore[cite: 3959]. And I went, how was I supposed to know that[cite: 3960]?
Naomi Mhmm[cite: 3960].
Scott Benner And she says, it's on our website[cite: 3961]. And I laughed, and I said, you think I spend a lot of time on your website, do you[cite: 3961]? I said, you didn't send out a note[cite: 3962]? Call, text, email Right letter, anything[cite: 3962]? Yeah[cite: 3963]. No[cite: 3963]. We just don't do that anymore[cite: 3963]. And I said, I have to ask you[cite: 3963]. Why not[cite: 3964]? And she said, the cans are too heavy[cite: 3964]. And I said, can I ask you a question[cite: 3965]? Why won't you hire people who are strong enough to pick up the cans[cite: 3966]? Wouldn't that be weird if I hired doctors who didn't know anything about medicine or a recycling guy who can't pick up the cans[cite: 3967]? Like, I was like, what what what is going on here[cite: 3968]? Well and then she's arguing back and forth with me, and I I was like, look[cite: 3969]. I'm not trying to be difficult[cite: 3969]. I'm like, I paid $75 for that blue can[cite: 3970]. Are you gonna give me $75 back[cite: 3971]? No[cite: 3971]. But we'll give you other cans if you want[cite: 3971]. And I said, but those cans are smaller, and you only come for the recycling twice a month[cite: 3972].
Scott Benner How many little green cans am I supposed to strewn across my property[cite: 3973]? How much property do you think I have exactly[cite: 3974]? What am I in the can, you know, storage business[cite: 3974]? I'm like, what's going on here[cite: 3975]?
Naomi Don't you know I run a diabetes podcast[cite: 3976]? I'm busy[cite: 3976].
Scott Benner Time for you now[cite: 3976]. Also, the blue one held all my recycling[cite: 3977]. It was one nice can[cite: 3977]. Right[cite: 3977]? So I said, okay[cite: 3978]. I'll go dump it into the green can[cite: 3978]. Are you gonna come back and get it[cite: 3978]? She goes, no[cite: 3979]. I said, can I bring it to you[cite: 3980]? She says, no[cite: 3980]. I said, what do you want me to do with it for the next two weeks[cite: 3981]? And you know what she said[cite: 3982]? You can throw it in the trash[cite: 3982]. I said, well, then why in God's name am I recycling if I can throw it in And the you know what her answers were[cite: 3983]? Not helpful[cite: 3984]. And she was in charge[cite: 3984]. I'm gonna tell you that when institutions when this is how things work is my point Mhmm [cite: 3985, 3986] and you're telling me
Naomi Don't don't get your hopes up[cite: 3886].
Scott Benner Don't get your hopes up is my point[cite: 3987]. Yeah[cite: 3987]. Yeah[cite: 3987]. Yeah[cite: 3987]. Thank you[cite: 3987]. Okay[cite: 3988]. Okay[cite: 3988]. That thank you for taking my point out of that[cite: 3988]. I'll I'll tell you the same thing that I've been thinking for, like, fifteen years or more[cite: 3989]. I once interviewed a guy, a researcher working on I think it was Veritex back then[cite: 3990]. They were making this pouch of cells they were gonna implant under your skin, blah blah blah[cite: 3991]. Mhmm[cite: 3992]. And, it was really interesting[cite: 3992]. Certainly didn't seem as quickly successful as this one out of Chicago right now[cite: 3992]. But point was is they were having some success with it[cite: 3993]. And I asked him during the course of the interview, if you got it all together right now like I said, just say right now a bell went off and it works[cite: 3994]? Right[cite: 3995]? I said it works great[cite: 3995]. When do I get it[cite: 3995]? Mhmm[cite: 3995].
Scott Benner And then he started talking about, well, you know, we've gotta source the cells, and we've gotta you know, you gotta put infrastructure in place to build the pouches[cite: 3996]. And then there's gotta be training that's done with the doctors, and you have to find doctors that can do the procedure and, like, you know, and insurance, of course, you're gonna loop in, blah blah[cite: 3997]. And he pauses, and he goes, I don't know[cite: 3998]. Fifteen years[cite: 3998]? And I said, so even if you figured it out today and it worked for sure[cite: 3999]...
Naomi Yeah[cite: 3999].
Scott Benner You're saying fifteen years later, that's when I'll see it[cite: 4000]? And so my I think my point stands[cite: 4001]. I mean, you can see right now there's you know, I don't believe that the current law even allows for the cells to be I don't know[cite: 4001]. I'm I'm not even sure[cite: 4002]. But right now, there's legal issues with how, you know, how available the cells are gonna be, the islet cells are gonna be[cite: 4002].
Naomi Right[cite: 4003].
Scott Benner Even if you had a pile of them a mile high and 10 feet, you know, and 10 miles wide [cite: 4003]
Naomi Doesn't mean it's gonna get to the the people [cite: 4003]
Scott Benner that you're mean that how many doctors are gonna do the procedure[cite: 4003]. I'm like, I mean, there's a guy doing it right now[cite: 4004]. What's he gonna give them to what's he gonna put all 2,000,000 of you in line and do it[cite: 4005]? Like, right[cite: 4006]? Like, there's a, you know, a drug protocol afterwards where you have to go I think what did she say[cite: 4006]? She's getting a an infusion every twenty one days[cite: 4007]? Mhmm[cite: 4013]. Who's doing that[cite: 4007]? Who's paying for that[cite: 4008]? You're gonna go tell the the insurance company right now they're gonna pay for that[cite: 4008]?
Naomi And she's going flying to Chicago [cite: 4009]
Scott Benner Because they're only right now, they're only doing the infusions there[cite: 4009].
Naomi There[cite: 4010]. Right[cite: 4010].
Scott Benner My point is there are a lot of there are a lot of steps between now and then[cite: 4010]. Yeah[cite: 4011]. I also think things will change a lot between now and then[cite: 4011]. I mean Right[cite: 4011]. One of the things I would imagine and she mentioned is they'll probably try to find a way for you to give yourself the drug at home at some point[cite: 4012]. Right, instead of it being infused, or maybe they can send it to an but these are not things that happen quickly[cite: 4013]. Yeah[cite: 4014]. Right[cite: 4014]?
Social Media Traps vs. Real Community
Naomi It's hard to not be enthusiastic when all of this news is coming at you so quickly[cite: 4014]. But at the same time, I think it it like you said, you know, it's important to be realistic about [cite: 4014]
Scott Benner Here's where I'll complain[cite: 4015]. I think it's a bit I need my right word[cite: 4016]. I think it's a little unfortunate that the way social media works and the way that people keep their accounts active and popular is intersecting with this[cite: 4017]. Mhmm[cite: 4017]. Because this is all very exciting[cite: 4017]. You should know about it[cite: 4018]. It's amazing[cite: 4018]. It could very well end up being what ends up happening for people[cite: 4019]. But when you give it to people in TikToks and Mhmm [cite: 4020]
Scott Benner Instagram reels, it makes it feel like it's happening now[cite: 4021].
Naomi Tomorrow[cite: 4021].
Scott Benner Yeah[cite: 4021]. Is not happening right now[cite: 4022].
Naomi Yeah[cite: 4022].
Scott Benner Right[cite: 4023]? And so my fear becomes is that people will go, well, I don't really have to bolus that one fifty because I'm gonna get [cite: 4023]
Naomi I'm gonna be cured [cite: 4023]
Scott Benner if I treat it[cite: 4023]. Jam islets cells [cite: 4024]
Naomi islets cells[cite: 4024].
Scott Benner In my liver, and then I'm gonna take in some juice[cite: 4024]. And then I'm gonna because they only heard, you know, the TikTok version of what's going on[cite: 4025].
Naomi Right[cite: 4025].
Scott Benner And also the people who are doing a good job of sharing their story, it also makes it feel like it's everybody[cite: 4026]. So for the same reason that they'll tell you social media is bad for young women, for exact example[cite: 4027]. Right[cite: 4028]? Like, nobody holds a camera in front of themselves when they're not looking great Mhmm [cite: 4028] and doesn't and they're not at the beach or in the best part of their day or whatever[cite: 4029]. And so what happens is young girls see that, and they think my life's not that exciting[cite: 4030]. I don't always look this good[cite: 4031]. Like, blah blah blah[cite: 4031]. Makes It people feel badly[cite: 4031]. I think that that same thing of having someone stand up and constantly telling you how well their trial is going makes it feel like, oh god[cite: 4032]. That's a thing that exists right now, and I don't have it[cite: 4033]. And I don't think that's I don't think it exists right now[cite: 4034]. It exists right now for those people [cite: 4034]
Naomi Mhmm[cite: 4034].
Scott Benner Which is awesome[cite: 4035].
Naomi And it's it's really a handful of people[cite: 4036]. It's like [cite: 4036]
Scott Benner I am certainly not down on it[cite: 4036]. I think it's awesome[cite: 3955]. I just think that if [cite: 3955]
Naomi step in the right direction, but it could be years before[cite: 4037].
Scott Benner Yeah[cite: 4038]. Just keep in mind that my daughter's had diabetes for twenty years, and the Walgreens gave her the wrong test strips the other day[cite: 4038]. I've been getting them there[cite: 4039].
Naomi Never ends[cite: 4039].
Scott Benner Never ends[cite: 4039]. And you're and I'm telling you that there's an infrastructure in place that relies on people and money[cite: 4040]. Another thing[cite: 3755]! Right[cite: 3756]? 13 infusions over thirteen days[cite: 4042]. It could push off the the onset of your type one diabetes for a couple of years maybe if if you catch it in time[cite: 4042]. I've interviewed people who have done it[cite: 4043]. Right[cite: 4043]? Yeah[cite: 4043]. But they had to fly somewhere, put themselves in a hotel for thirteen days[cite: 4044]. Their insurance didn't wanna cover[cite: 4045]. They fought with insurance over and over and over again[cite: 4045]. While they were fighting with their insurance, they were losing the time they needed to get the thing[cite: 4046]. It almost didn't happen[cite: 4047]. Blah blah blah blah blah[cite: 4047]. I don't know what it actually cost in cash[cite: 4048]. I'm sure it's millions of dollars[cite: 4048]. Like, you know what I mean[cite: 4049]? Point being, like, there's not a, I don't know, a building full of Band Aids right now, and we're just trying to figure out how to get them to your house[cite: 4049]. Like, that's not what's happening right now[cite: 4050].
Naomi Yeah[cite: 4050].
Scott Benner Right[cite: 4050]? There's there's so many confusing steps that need to happen between the excitement you're seeing with these people, and I am genuinely excited by it, and you actually having access to it that I don't think my answer to your question is is that I don't think that it's time to get excited that it's coming[cite: 4051].
Naomi Okay[cite: 4052]. Yeah[cite: 4052]. Yeah[cite: 4052]. I think it's time [cite: 4052]
Naomi That's a good perspective[cite: 4110]. I mean, I'm really looking forward to listening to [cite: 4053]
Scott Benner Me too[cite: 4053].
Naomi Your interview with doctor Witowski and Yeah [cite: 4054] and see what he says about it[cite: 4054]. But yeah[cite: 4054]. I mean, I think that's people have been saying too, you know, oh, twenty years ago, they said a cure is right around the corner[cite: 4055]. Yeah[cite: 4056]. And I I'm like you[cite: 4056]. I mean, I'm I'm very excited by it, and, obviously, it is a step in the right direction[cite: 4056]. But I understand what you're saying about, you know, the process of getting from there to all type one diabetic diabetics no longer needing insulin[cite: 4057].
Scott Benner Yeah[cite: 4058]. I mean, I saw a guy on Instagram, and, you know, he got it one time, and it it lowered his insulin needs but didn't stop them[cite: 4058]. And then they had to bring him back and give him more cells[cite: 4059]. They they that's part of the process, apparently[cite: 4060]. And so this is still in the testing phase[cite: 4060]. They're trying to figure out, you know, how much to give you to get the outcome you're looking for[cite: 4061]. Like, they don't know any of I'm gonna guess that guy's gonna tell you, like, look[cite: 4062]. I've got an idea, but, you know, I'm gonna have to do this 50, a 100 more times before I even have an answer[cite: 4063].
Naomi Yes[cite: 4064]. And is it is it worth it to just delay you're, you know, you're delaying the progression, but if you're still gonna get it and need insulin anyway, you know, insulin's not a bad thing[cite: 4064].
Scott Benner I don't know that any of us know where it's gonna end[cite: 4065]. So I'm excited to talk to him because I'm gonna ask him those questions[cite: 4066]. Okay[cite: 4066]. And I try I I and quite honestly, I I almost recorded with him, like, five months ago, and then there was a scheduling problem[cite: 4067]. So, like, it took this long to fix like, to to get back around it again[cite: 4068].
Naomi And Good[cite: 4068]. And now now is probably the better time to talk to him[cite: 4069].
Scott Benner Maybe[cite: 4069]. Yeah[cite: 4069]. And hopefully[cite: 4070]. And hopefully, listen[cite: 4070]. Hopefully, it's a great conversation[cite: 4070]. The guy comes back on every six months and gives you a little update about what's happening and gives you a feeling, but I'm gonna ask him[cite: 4071]. Maybe he'll tell me differently[cite: 4072]. Maybe he'll say no, Scott[cite: 4072]. Get real excited[cite: 4072]. Like, you know what I mean[cite: 4073]?
Scott Benner I don't know what he's gonna say[cite: 4073].
Naomi Well, I'll be list I'll be listening for sure[cite: 4074]. And Thank you[cite: 4074]. Also, please thank Jenny for me because she really taught me everything I needed to know about Omnipod use[cite: 4075].
Scott Benner Oh, you're welcome[cite: 4076]. I'll I'll let her know[cite: 4076].
Naomi Appreciate that[cite: 4076].
Scott Benner Yeah[cite: 4077]. Yeah[cite: 4077]. I mean, would've it been nice if you would have ended saying how valuable the podcast was for you[cite: 4077]. But sure, Jenny[cite: 4078]. As well[cite: 4078]. No, Jenny[cite: 4078].
Naomi I mean, I think I did I think I did allude to that[cite: 4079].
Scott Benner Yeah[cite: 4079]. I know[cite: 4079]. But this was the last thing people hear[cite: 4080]. You know what mean[cite: 4080]? And this is what sticks in their head[cite: 4081]. Scott doesn't think that the cure is coming, and Jenny's better[cite: 4081]. That's what they're gonna leave this with[cite: 4082].
Naomi Scott thinks there's no heal hope, [cite: 4082]
Scott Benner and Jenny's awesome[cite: 4082]. Scott's a hopeless and Jenny's awesome[cite: 4083]. I'm very hopeful about it, and Jenny is awesome[cite: 4083]. So...
Naomi Alright[cite: 4083]. That's great[cite: 4084].
Closing and Handout Resources
Scott Benner I appreciate you doing this with me[cite: 4084]. I really do[cite: 4084].
Naomi No[cite: 4085]. Thank you so much[cite: 4085]. And, you know, just really if if it weren't for Juice Box, you know, you can really pick and choose what's right for you in terms of what you need to listen to and what's relevant for you[cite: 4085]. And you've done so much in the die world of diabetes and education[cite: 4086]. So thank you[cite: 4086].
Scott Benner Naomi, you can't say it now[cite: 4087]. It feels like I bullied you into it[cite: 4087]. You know what mean[cite: 4088]?
Naomi I didn't even remember that you told me to[cite: 4088].
Scott Benner I appreciate it very much[cite: 4089]. I actually, did something recently[cite: 4089]. I had a hospital reached out to me and said, can you please make it easier to share the podcast for us[cite: 4090]? So we've been building like a website to like Oh[cite: 4091]. Like where they can kinda go and print from or or text an image of a list of things and stuff like that[cite: 4092].
Naomi Right[cite: 4093]. Right[cite: 4093].
Scott Benner I was like, okay[cite: 4093]. Like, I think I got it about where they want it[cite: 4094]. And so I went on to the Facebook group and I was like, hey[cite: 4095]. You know, if you're like a a health care professional who suggests the podcast, could you reach out because I need to, like, share this link with you and see what you think of it[cite: 4096]? And, like, a couple of dozen people reached out in twenty four hours and they were like, oh, I Yeah[cite: 4097]. I I was like, oh, it may I was like, oh, I'm glad this is helping people[cite: 4098]. You know[cite: 4099]? So, hopefully, we'll make it a little easier on the doctors so they can, and the educators because, apparently, they're sharing, like, things they're printing out or, you know [cite: 4099]
Naomi Right[cite: 4099]. Like a hand like an old school handout or something[cite: 4100]. Yeah[cite: 4100].
Scott Benner They're they're looking at me, and they're like, could you maybe, you know, make this easier for us, please[cite: 4101]?
Naomi And, you know, a lot of people some people get their inform you know, people get their information in different ways[cite: 4102]. So for the people that like to listen and are, you know, out and about all the time and have a have earbuds in, you know, it's it's so helpful[cite: 4103]. And the Omnipod one, for sure, and, like, bold beginnings[cite: 4104]. I mean, at the beginning, I really did listen to those over and over again[cite: 4104].
Scott Benner Yeah[cite: 4105].
Naomi Because you you pick things up the second time that you missed the first time or you need it reinforced[cite: 4106]. You know[cite: 4107]? And so [cite: 4107]
Scott Benner I agree[cite: 4107]. I I I think it it's a thing that people do end up going over a number of times when they're trying to teach themselves[cite: 4107].
Naomi And it's the one thing[cite: 4108]. When when you're diagnosed as a type one diabetic, you're not specifically told this is a disease where you will have to educate yourself and do deep dives yourself[cite: 4108]. Yeah[cite: 4109]. You know, I almost wish I had been told that from the beginning so it wouldn't have been such a shock[cite: 4109]. You know[cite: 4110]?
Scott Benner Yeah[cite: 4110]. No[cite: 4110]. I hear you because it really does feel like what I really took from what you said earlier was that, like, even though you're focused on it and you're a bright person, you're trying to learn and everything, like, there is still that, like there's there's a an insecurity in your mind[cite: 4110]. Like, am I doing the right thing[cite: 4111]? Is this Right[cite: 4111]. Am I doing too much[cite: 4111]?
Naomi Feels like a guessing game[cite: 4112].
Scott Benner Yeah[cite: 4112]. Yeah[cite: 4113]. Yeah[cite: 4113]. Yeah[cite: 4113]. I I that wasn't lost to me that you said that[cite: 4113]. I thought that was really interesting[cite: 4113]. So, anyway, thank you again for doing this[cite: 4114]. Hold on one second for me[cite: 4114]. Okay[cite: 4114]?
Naomi Okay[cite: 4114].
Scott Benner A huge thanks to my longest sponsor, Omnipod[cite: 4115]. Check out the Omnipod five now with my link, omnipod.com/juicebox[cite: 4116]. You may be eligible for a free starter kit, a free Omnipod five starter kit at my link[cite: 4117]. Go check it out[cite: 4118]. Omnipod.com/juicebox[cite: 4118]. Terms and conditions apply[cite: 4118]. Full terms and conditions can be found at omnipod.com/juicebox[cite: 4119]. A huge thanks to US Med for sponsoring this episode of the juice box podcast[cite: 4120]. Don't forget, usmed.com/juicebox[cite: 4120]. This is where we get our diabetes supplies from[cite: 4121]. You can as well[cite: 4121]. Use the link or call (888) 721-1514[cite: 3279, 4122]. Use the link or call the number, get your free benefits check so that you can start getting your diabetes supplies the way we do from US Med[cite: 4122].
Scott Benner Hey, kids[cite: 4123]. Listen up[cite: 4123]. You've made it to the end of the podcast[cite: 4123]. You must have enjoyed it[cite: 4124]. You know what else you might enjoy[cite: 4124]? The private Facebook group for the juice box podcast[cite: 4125]. I know you're thinking, Facebook, Scott, please[cite: 4125]. But no[cite: 4126]. Beautiful group, wonderful people, a fantastic community[cite: 4126]. Juicebox Podcast, type one diabetes on Facebook[cite: 4126]. Of course, if you have type two, are you touched by diabetes in any way, you're absolutely welcome[cite: 4127]. It's a private group, you'll have to answer a couple of questions before you come in[cite: 4128]. We'll make you're not a bot or an evil doer, then you're on your way[cite: 4128]. You'll be part of the family[cite: 4129]. I can't thank you enough for listening[cite: 4129]. Please make sure you're subscribed or following in your audio app[cite: 4130]. I'll be back tomorrow with another episode of the Juice Box podcast[cite: 4131]. Have a podcast[cite: 4131]? Want it to sound fantastic[cite: 4131]? Wrongwayrecording.com[cite: 4132].
