#1894 Four chats live From ADA

Learn about SugarPixel 

Four separate short conversations, one booth. This isn’t one long interview — at his first ADA, Scott recorded four quick (~10–15 minute) chats back-to-back at the Sugar Pixel booth: Lane Desborough on creating Nightscout, Madison Smith on smarter MDI, Kenny Fox on DIY Loop, and John Sjolund on Luna’s overnight automation. Each stands on its own; the throughline is the people quietly building the tech behind modern diabetes care.

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Dexcom
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Tandem
Touched By Type 1
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ABLEnow
JBP #1894 — The Engine Behind the Room — Full Transcript
Episode #1894 · with Lane Desborough · Madison Smith · Kenny Fox · John Scholland · Full Transcript

The Engine Behind the Room

66 min episode 13 chapters 13,740 words ≈58 min read

Welcome from ADA: inside the SugarPixel booth 0:00

Scott Benner0:00

Hello, friends, and welcome back to another episode of the Juice Box podcast. Today, I'm bringing you audio from ADA. So I sat down with a number of very interesting people at a booth at the American Diabetes Association Scientific Sessions where I was a guest of SugarPixel. At the SugarPixel booth, I interviewed these people. Top of my head, no preparation whatsoever, Some really, really interesting people.

Lane Despero. You're gonna learn more about him. You're gonna learn more about Scott Johnson and Blue Circle Health. You're gonna hear from a gentleman who's making a new product that is very exciting. Kenny Fox from Fox in the Loop House and I had a great conversation and so much more.

These are short conversations, ten, fifteen minutes at a time. I'm gonna put them all together right here for you. You wanna know what it was like to be at ADA? This was my experience. Nothing you hear on the Juice Box podcast should be considered advice, medical or otherwise.

Always consult a physician before making any changes to your health care plan or becoming bold with insulin. And if you'd like to support me by buying a SugarPixel, please do it at my link, customtype1.com/juicebox. Go get that brand new SugarPixel.

Lane Desborough: teaching insulin to talk to glucose 1:26

Scott Benner1:26

Everybody. I'm here at the Sugar Pixel booth with Dane Despro. I always think your name should have an x at the end of it every time I say it, by the way. Lane is a pretty spectacular guy. I'm gonna let you, learn about him through his words.

So, Lane, can you tell me how you find yourself at ADA and a little bit about your your time with diabetes?

Lane Desborough1:43

Sure. So sixteen years ago, my awareness of diabetes was it had something to do with glucose and insulin. That was my level of understanding of of diabetes sixteen years Sixteen years. And then, my son was diagnosed, and I climbed a pretty steep learning curve after that.

Scott Benner2:01

Wow.

Lane Desborough2:02

I didn't even know I knew insulin did something to glucose. I didn't even know whether it made it go up or down. That's my level of understanding.

Scott Benner2:08

And your son's diagnosed. You throw yourself into it. What's your background? Why did it work

John Scholland2:12

out for you?

Lane Desborough2:13

So my background is engineering, chemical engineer, and in various engineering disciplines, you specialize. So Mhmm. Specialized in what's called process controller automation. So these are the brains of oil refineries and chemical plants. So Okay.

There's not a bunch of people going around turning knobs and looking at dials. There's computers doing that.

Scott Benner2:34

Right.

Lane Desborough2:35

And this is what immediately drew me to a realization that why don't we do this with insulin and glucose? If I can twiddle or if I can use computers to control chemical plants, why can't we use computers to control blood glucose?

Scott Benner2:50

So how what do you do with that knowledge? Where do you throw your your effort? I mean, I I don't wanna speak for you, but I make a podcast today about diabetes because when my daughter was diagnosed, I wanted to help, and I took what I thought were my skills and put them in an area where I thought they would work. I'm assuming you did the same thing, but how did you figure out where to start?

Lane Desborough3:09

Yeah. So, I was curious about the whole how does this work? I've got it I I knew about CGMs. I knew about pumps. At the time, sixteen years ago, they weren't really connected to each other.

Okay. So and this really surprised me that, okay. There's here's a device over here. It's like the speedometer on your car Right. And there's the gas pedal down there, like the insulin.

Met. Yeah. They've never met, and and I know how to do that. Like Right. That's my that's my superpower.

Scott Benner3:35

Okay.

Lane Desborough3:35

So that immediately got me interested in, has this been done before? Are others doing this? And I discovered fellow chemical engineers who were five or ten years ahead of me already on that path in a research capacity.

Scott Benner3:49

Okay.

Lane Desborough3:50

So at, at universities doing this.

Scott Benner3:53

Mhmm.

Lane Desborough3:53

And and I thought, well, maybe I can contribute my industrial experience doing that. And so one thing led to another, and I wound up about nine months after my son was diagnosed working for Medtronic. Okay. So in a complete happenstance, accidental But you

Scott Benner4:10

just switched jobs and threw your effort

Lane Desborough4:12

looked at it of why would I work on something trivial like the world's energy problem when I can work on something more meaningful to

Scott Benner4:19

Help your son.

Lane Desborough4:20

Help my son.

Kenny Fox4:20

Yeah. And

Lane Desborough4:21

so I was like, that's when I got my calling. It's like, oh, that's why I have twenty five years of experience. I can go use that to something much more purposeful for me.

Scott Benner4:28

Oh, that's lovely. That it felt that way to you. Like, I've been

Lane Desborough4:30

preparing And still feel that way.

Scott Benner4:31

I've been preparing for this.

Lane Desborough4:32

And and what I would say is that that mantra, that that goal, I've I've done different things over the intervening sixteen years, but it's always with that goal of how can I leverage my skills and experience, such as they are to, further the availability of Right? Of these transformational therapies like automated insulin delivery.

Scott Benner4:53

Do you think most people online know you for Night Scout?

Lane Desborough4:57

Well, that was one of my side projects. Yes. So yeah. So maybe they do.

Scott Benner5:00

Yeah. Yeah. But what so what did you what did you do? I guess, let me ask you instead. What what did you do at Medtronic?

How long were you there, And then what did that lead you into after that?

Lane Desborough5:08

Well, so one of the things going back to at the time, CGMs, if you wanted to see the CGM value, you had to look at the pump. Do remember the Yeah. The pump had the little display on it? Then so so here, Hayden was 10 years old at the time and we were still going into his bedroom three times a night to see if he was still alive. Right.

Yeah. Right? Dead and bad and and so

Scott Benner5:32

Good times.

Lane Desborough5:33

And and at the time that I that he was diagnosed, I was working for GE Energy. And GE Energy, they monitor a thousand gas turbine power plants around the world. So Saudi Arabia, the jungles of Brazil. So so I was the product manager of this remote monitoring center. And I thought it's crazy that I can monitor a gas turbine in Saudi.

Right. And I can't see my son's blood glucose 20 feet away in his bedroom. Like, there's no technical limit to that. Right. Because we're doing far more difficult things to get this telemetry back.

Sure. So that's really what precipitated NightScout

Scott Benner6:08

Okay.

Lane Desborough6:08

Was this realization that there was no technical, limitation to to doing this. And that's the thing

Scott Benner6:15

you did on the side.

Lane Desborough6:16

And that I did that on

Scott Benner6:16

the side. At home. Okay. I I have to ask you. Once you have it and it works and you think this is a great tool, people will use it, how do you get it to people?

You just give it away a little bit and think, alright. It'll make its way around. Like, are you stunned at how far it's gotten in the I have a phone right now, and I I have it on mine. So, you know

How Nightscout was born: crawling through broken glass 6:36

Lane Desborough6:36

So I was really shocked. I I thought and at the time, the there was so much technical difficulty in setting up NightScout. I thought there'll be three people in the world who will, how it would look classified or characterized as crawling through broken glass or learning Swahili. Like, don't if and I didn't realize there were a whole bunch of people who would be willing to crawl through technical broken glass and learn obscure things To make it happen. To make it happen.

Yeah. And that that all got progressively easier. Now it's like a one click install.

Scott Benner7:05

Right.

Lane Desborough7:05

But that's I I really thought that what we were doing with Night Scout in terms of adding value to the community was showing an unmet need. Okay. Because at the time, like, I was wearing at Medtronic, they said, we've seen no customer research. Our marketing department hasn't said there's a need for this. They're like, I'm telling you there's a need

Scott Benner7:23

for this. Nobody wants a show. Like, I want it.

Lane Desborough7:25

Exactly. I'm telling you, my wife, cold dead hands, Geraldine Heston, kind of attitude to take away Night Scout.

Scott Benner7:31

Yeah. It was No kidding.

Lane Desborough7:32

That was it was that powerful. Do you

Scott Benner7:34

so do you feel like you're because of your personal experience, you found a way to be ahead of the curve of where the industry is? So it's funny

Lane Desborough7:43

you say that because I I had a talk with the then president of Medtronic one time, and I said, I want you to understand that I'm kinda like an alien from the future. Mhmm. There are people like me, but they would not voluntarily come into this essentially backwater of technology Yeah. Called medical devices unless they had a personal motive for doing so. Right.

And that's really the way I felt. It it was so frustrating to me just how conservative and and blank sheet of paper and we need to go to primary research. So that was really, I think, what triggered me to say we are not waiting. It's like Right. We don't need to wait.

Like, all these other industries have already done this before.

Scott Benner8:27

Yeah. It's wonderful.

Lane Desborough8:27

We just steal from them, you know, proudly found elsewhere.

Scott Benner8:30

Yeah. Yeah. And, yeah, proudly found elsewhere and make this happen. I tell people all the time that I mean, my daughter's gonna be 22 soon. She's diagnosed when she was two.

So we've been at this twenty years, And there was a long stretch of time where just someone putting out a new meter, even though the MARD wasn't any better, like like, the meter didn't do anything differently. You just looked a little and you were like, oh my god. We got a new thing. That was advancement back then. And then all of a sudden, I don't know I don't know.

In my world, it was, I guess, Dexcom. Dexcom started, and then they figured out a way to kinda get through the FDA a little faster, and then the innovation started happening, and everybody kinda piled on innovation now. And then you look back and you think, those meters are like the equivalent of boiling needles and peeing on strips Yeah. In in a twenty year span. And now, I guess, what I'd love to ask you about next is, now that things have sped up so much, it's not gonna take twenty years for us to get to the next thing.

So what's gonna make our CGMs and our pumps look like peeing on sticks in the future? Do you see anything out there?

Lane Desborough9:32

So I I think one way to answer the question is the physical like, how do how are these gonna look physically in the future? Right. And that's what that's what most people think of. And so is it gonna be a one one device or a

Scott Benner9:46

Smaller or thinner or a

Lane Desborough9:47

thinner or purple or Yeah. Like some Right. Some physical attribute. And I I think we'll continue to see some advancements there, but honestly, that's that's not what's is interesting to me as what we're doing with the algorithms in

Scott Benner10:01

what I want. Yeah. Yeah. Like, I I want the data to come in and instead of it being a fixed set of if this, then that, it's if this, then that, and then something else thinking about it, and then changing if this, then that. Right?

Kenny Fox10:14

And I

Scott Benner10:15

think I I I have no technical mind, but that's the idea. Right?

A thinking disease: lifting the cognitive burden 10:17

Lane Desborough10:17

Oh, a 100%. So and this is where I think people who don't have diabetes and they think, it's the physical part of the disease that's so hard. Mhmm. Finger sticking or infusion sets or wearing all this stuff. But there's this cognitive burden.

Right? It's a thinking disease.

Scott Benner10:36

Yeah.

Lane Desborough10:36

Yeah. It is you you are never not thinking about your diabetes Mhmm. And it's consuming, resources in your brain that would otherwise, be for a

Kenny Fox10:44

better purpose.

Lane Desborough10:45

So so I think that's really where the opportunity is is to how do we allow people to just live a more, enriched life and

Scott Benner10:53

not have to worry about it. I imagine it would not surprise you to hear that I have a little estimator on my website that I built. Right? You put in your carb ratio, your sensitivity. You can put in your current blood sugar.

It applies some Warsaw math to it. Carbs, fat, protein, if you want, you can tell it which direction your your CGM is moving in and your current blood sugar insulin on board. Hit a button, and it'll say to you bolus this much now and this much later. Three bolus about fifteen minutes. Make this next wave last four hours.

It is the most popular page on my website. Wow. I have never shared it publicly with anybody. Wow. I All word-of-mouth.

But to your point, what what is it doing? It's just relieving someone's burden

Lane Desborough11:41

Mhmm.

Scott Benner11:41

Around a meal. That's all it is.

Lane Desborough11:43

Yeah. And and is it like, this is what happens with with people who don't have diabetes. That's what their endocrine system is doing. Sure. Right?

You're having the cephalic response, the Pavloni. Like, you're anticipating dinner, your, or lunch in our case, and it's already secreting, insulin getting ready for that. Like, that's like, we're not thinking about it. Now when that loop gets broken Mhmm. You have to think about it.

Scott Benner12:06

So based on something you said earlier, I

John Scholland12:08

wanna ask this next question.

Scott Benner12:09

You are at Medtronic, you say this is important. People go, we don't think it is. Is that happening now? Are there a group of, you know, rebel fighters out there working on stuff and the companies are saying we don't see this, or do you think everyone's on the same page now?

Lane Desborough12:25

I think that's been that's a great question. There's been an evolution of what do we do with this people with diabetes community. Right. How do we how do we understand what they're doing, what their needs are? Yeah.

So that's that's one of the things that drives these companies. The other one that really bothers me is this feature function checklist battle phase. Like, oh, they have a dual wave bolus calculator. We better have a dual wave bolus calculator. They have an exercise mode.

We better have an exercise. And a lot of those features aren't actually helpful

Scott Benner12:56

Now you're being able don't actually use

Lane Desborough12:58

them. Yeah.

Scott Benner12:58

I used to like when they're like, we have a food library. I'm like, no one cares about that. Exactly. Yeah.

Lane Desborough13:03

So so that's I think those those are sort of two tensions of driving. It's like, we need to keep up with the competition

Scott Benner13:09

Right.

Lane Desborough13:09

But, we should be paying attention to what the unmet user needs are.

Scott Benner13:13

Yeah. I I'll share with you that because of what I do and for how long I've been doing it, the amount of people who have come to me and said, I have an app, and I always think, don't care. Yeah. I don't care. Your app is no one's it it adds to the burden.

It doesn't take away from it.

Lane Desborough13:29

Yeah. The perfect app is no app.

Scott Benner13:30

Even if it's great, it does it still adds. Now I gotta open the app, and I gotta do a thing. Oh, you just log your and I'm like, no. That that you don't understand what it's

John Scholland13:38

like to live

Scott Benner13:39

with this if that's how you built this.

Kenny Fox13:40

You know?

Lane Desborough13:41

When I was at Medtronic, they brought in somebody from IDEO or one of those companies that does design. Yeah. And they were talking about making the app sticky and more of and it's like, you're missing the point. Like, the best app is no app. Like, don't want people engaged with their diabetes app eight hours a day.

You failed if that's the case.

Scott Benner13:58

Yeah. So do you so a lot of companies are talking about, one day, we're not gonna have to put in our carbs. Like, do you think they're gonna get to that? Because don't aren't they more restricted by just I mean I mean, listen. Why does Loop you know, why is Trio?

Why are these things out ahead? Because they don't have to go back to the FDA and say, is this okay? And you don't get one CEO who's risk averse and one who's a little less and everything. So, I mean, is that in your opinion, is the DIY community gonna stay ahead in that?

Lane Desborough14:26

I think it will. The one of the point about getting to full closed loop, because I think that's what you're asking. Yeah. Right. If we don't have the current carbs anymore, we don't have to do hybrid closed loop.

We don't have to do a meal announcement, which is the number one most burdensome thing. Right? Like, three times a day, there's a huge mental burden of I am now doing carb count and pre meal bolus and

Scott Benner14:46

It becomes more and more evident to me as my daughter gets older and transitions away from being a child, and I'm watching her be an adult in the world living with diabetes. If if you ask me what she needs most, she needs the alleviation of decision making, like, I think.

Lane Desborough15:00

A 100%. Yeah. And it's it's kinda one of these things that people go through various phases in their life where they might have the headroom at a certain point to be able to Mhmm. Contribute those decisions, but there's, like, new parents or new jobs or stressful jobs or puberty. Like, there's other priorities of their life.

So how do we help people as they're going through these various phases of their life to still be safe in Yeah.

Scott Benner15:24

Safe, healthy, and as uninvolved as possible is what I would is what I would wish.

Lane Desborough15:29

Sort of at the the top of Maslow's hierarchy of needs. Like, instead of, like, worried about the primal Yeah. Base things, like, how can I self actualize because I don't have to worry about all this other crap?

Scott Benner15:38

Other stuff. Yeah. Yeah. So is that what are you involved in right now? Like, how do you spend your time sixteen years later after you've done these other things?

Lane Desborough15:48

So I love my job. I before describing what it is, I just some some people say like, Lane, you're working on the weekend. It's like, no. I'm like, I'm playing on the weekdays. Yeah.

It's so fun. Yeah. I joke that I I love recreational math. Like, some people do recreational chemistry. I do recreational math.

Right. And I just love the algorithms, the data science, the analysis of the data because it's a data disease as well. Right? It's all we get to all this data streaming in and and sometimes that's confusing to people. It's intimidating to people.

Show the path, then scale it: DIY, the FDA, the bottleneck 16:20

Lane Desborough16:20

They don't know how to act with it. But what I would say I'm what what I am doing right now, and this gets a little bit to the DIY community and one of the things when I did Night Scout, I I stopped. I stepped away from Night Scout as soon as it was launched for a couple of reasons. But one of them was I really felt we had we had shown the path. It's like, there you go, device companies.

It's your job to scale. Right. Right. It's like the field of dreams model. If we build it, they will come.

Like, there it is. Yeah. We've done our thing. Now you go do it for everybody. Right.

And and so Dexcom share and follow happened soon after that. But Yeah. I was talking with somebody at d data the other day that here we are sixteen years later, there's really nothing like NightScout from, integration of insulin and see it's like

Scott Benner17:08

I still hear people complain about it when they're using a retail system. Like, why can't I see this stuff?

Lane Desborough17:13

Like, my my wife, was a school nurse for many years. So 25 students under her responsibility. She was the diabetes expert, so, like, six schools at lunchtime.

John Scholland17:22

Right.

Lane Desborough17:22

She's getting pink. And and so she'd get a text and she she had something like 12 people on Dexcom follow or or kiddos. And the very first question she asked is how much insulin is on board? Like, it's not helpful for me to know Yeah. That their blood glucose is 200.

If they've got, you know, tons of insulin on board, that's a different thing Yeah. Than if they have no insulin on board. So that was frustrating to me that we're not seeing the scaling of these, pioneering things that the DIY community is doing, whether it was Night Scout or or Loop or Trio. So that's what I'm focused on now is how do we get scale? How do we get these, incredible technologies, whether they're coming from the DIY community or even from sponsors or sponsors is the FD word for device manufacturers.

Okay. It's taking them ten to twenty years from conception to wide scale of these. Yeah.

Scott Benner18:12

It's time. Need to. It's a lifetime.

Lane Desborough18:14

It really is. Lifetime. I mean Yeah. Yeah. And it takes the same amount for gen twos.

So so like the the second generation of an algorithm, it's on the same track as the first generation. Yep. So it is incredibly frustrating to me and I recognize this as a bottleneck or constraint in the

Scott Benner18:30

A venture.

Lane Desborough18:31

In the commercial regulatory flow

Scott Benner18:32

Yeah.

Lane Desborough18:32

Path and I said I think I have a solution to this.

Scott Benner18:35

No kidding.

Lane Desborough18:35

And that's what I went to the FDA and the Helmsley Trust a year ago

Scott Benner18:39

Right.

Lane Desborough18:39

And said all of those innovations that are happening over there and that are happening in companies, they're running into a a a like, just imagine a flow of value. There's a pinch in the pipeline down here, a bottleneck. And if we could relieve that bottleneck, we can get faster scale.

Scott Benner18:56

Laina, how about you come on the podcast, and we'll talk about the rest of that? Would that be okay?

Lane Desborough19:01

That would be fantastic.

“I didn’t know I was dying”: Scott’s thank-you to Lane 19:02

Scott Benner19:02

I'm gonna share something with you before I let you go. But, everybody who's listening, if you enjoyed that, we'll we'll have Laina on to do a a longer because I I'm sitting here thinking, I feel like we could talk about this for a couple of hours. So, but I wanna share something with you that you don't know. It's a thank you. So when I started doing all of this, I had just like everybody else said, no context for it.

My daughter was two. I was a stay at home dad. I genuinely felt like I was killing her most days. I did not find what the doctors were telling me to be helpful, and I am not a reader. I'm sorry to say out loud.

So I broke diabetes down myself, and I eventually came up with what I knew were, like, the rules. If I did this stuff, I got the outcomes I wanted. And I did a thing that a lot of people around the world do now. I I I kinda coined this idea of bumping and nudging blood sugar. Uh-huh.

And I would use temp basal increases and decreases. Sugar surfing. I would to manipulate the blood sugar. Right? I didn't know Steven.

I mean, I just I'm in my house like a mad scientist trying to figure this out. Right? But my understanding of what I was doing did not open up completely until I got night scout. And my daughter went on loop. And then when I saw the thing doing what I was doing, I thought, oh, I was doing the right thing.

And it was the first time I felt comfortable and confident that I wasn't just making it all up. You know what mean?

Lane Desborough20:23

That's fantastic.

Scott Benner20:24

It was just wonderful. Like, watching on Night Scout, watching Luke take away and give and bolus and knot and everything, I was like, oh my god. I've been doing that for a decade. And then you know what happened next? I slept through the night.

I And people don't appreciate what it's like to sleep through the night. It's and I didn't know I was dying. And if I if we get off camera and I show you a photo of myself before then, my body was given out. I wasn't sleeping at all. I was in a terrible situation.

I had no idea. Wow. Anyway, what you did Well, thank you. Really made a

Lane Desborough20:56

big difference.

Scott Benner20:56

No. Seriously. It really and I see other people walking. I'm gonna try to interview some of them today. I see other people walking around this room that I don't think half of these people know, and they don't realize how they're driving the engine behind a lot of what's going on in this room.

So I really do appreciate your time.

Lane Desborough21:11

A village. Everybody's bringing their their skills Sure enough. To to the fight. Diabetes is the enemy.

Scott Benner21:17

Yeah. Maybe that's really what this this couple days is about. So thanks again. I really do appreciate it. Thank you, everybody.

And thank you to Sugar Pixel for making this possible. Take care. Why don't you start by telling me a little bit about you? Who are you?

Madison Smith: a CDE with type one, smarter MDI 21:31

Madison Smith21:31

Great. So my name is Madison Smith. I live in San Diego, California. Mhmm. And I currently work as the therapy chief engineer for MDI systems at MiniMed.

Scott Benner21:43

How do you remember that? You're the therapy chief engineer.

Madison Smith21:47

I've gotten used to saying it, but it's quite a mouthful.

Scott Benner21:50

What does it mean? What what does the job mean?

Madison Smith21:53

I I would say that my role is to help make sure that we're engineering the products that make sense once they get into patients' hands. So how is it actually gonna be used, to help best manage the way that they wanna manage their diabetes? Right. Does it fit into the way health care teams want to introduce and use technology and and

Scott Benner22:19

So we don't want there to be some, like, high minded idea that when it gets out into the real world, it doesn't really do the things that people intend.

Madison Smith22:26

Right.

Scott Benner22:26

Okay. So what what what exists right now that you're working with that you think actually does help people in the real world?

Madison Smith22:34

So I so I work on MiniMed Go or MDI systems.

Lane Desborough22:39

And

Madison Smith22:39

so I think historically, when you were looking at what it takes to manage MDI, you I mean, you have pump, which I would say is the gold standard, you saw, algorithms being developed and so much sophistication.

Lane Desborough22:54

Mhmm.

Madison Smith22:54

And then the kind of the alternative on MDI, which more than seventy percent of people living with diabetes are still on MDI therapy.

John Scholland23:03

Sure. Yeah.

Madison Smith23:04

We're like in the dark ages of pencil and paper and calculator.

Scott Benner23:09

Get the benefit of all these things that we've learned because they're MDI. They prefer to be MDI usually, or is it access sometimes?

Madison Smith23:16

I think it depends. Right? Sometimes it's access, sometimes it's cost. And in my case, which we didn't even cover this yet, but

Kenny Fox23:24

I Do

Scott Benner23:25

you have type one?

Madison Smith23:25

I have type one.

Scott Benner23:26

Okay.

Madison Smith23:27

And I just have a strong preference to be on MDI therapy.

Scott Benner23:31

Mhmm.

Madison Smith23:31

But I kept always feeling like I was being pushed towards a pump because that's where I had calculator support. It could track how much active insulin I had, and so all those features that would kind of push me towards a pump, but I really preferred MDI.

Scott Benner23:47

How long have you had type one?

Madison Smith23:49

I've had type one since I was 16 years old.

Scott Benner23:51

Okay. And you're 25 now.

Madison Smith23:54

I wish. Okay. Not quick.

Scott Benner23:55

So you've had it for a while.

Madison Smith23:56

I've had

Scott Benner23:56

it And for and you prefer MDI, but as things progress and get better, did you have the feeling of, like, oh, I'm being left behind with my health?

Madison Smith24:05

Yes. So I kept I mean, I was finding myself being pushed towards a pump. Yeah. But then when I learned about the InPen and now these smart connected devices that can track active insulin, that can help inform dosing decisions, and really offered the things that I was looking for out of pump therapy, but let me be on MDI

Kenny Fox24:25

Yeah.

Madison Smith24:25

In a more sophisticated, like, raise.

Scott Benner24:27

It's exciting.

The locked door and the unplugged iron 24:28

Madison Smith24:28

Like, I keep thinking, like, why did we leave MDI in such, like an example I give is, like, how often have you left the house and you can't remember if you've locked the door Mhmm. Or you can't remember if you've unplugged the iron. And in all those cases, you can go back and you can physically check and see that the door is locked Right. Or you can see the iron's unplugged. And then we have this medication that we have to take four or five times a day Yeah.

That has serious consequences if you miss it or if you double take it, and there was no way of knowing. If you took it, how much you took it, what time you took it.

Scott Benner25:05

Yeah.

Madison Smith25:06

And so now having that more smart informed connected technology is what

Scott Benner25:11

So do you use the what pen do you use?

Madison Smith25:13

I do I use an in pen

Scott Benner25:14

You use the in pen.

Madison Smith25:15

With the MiniMed Go system.

Scott Benner25:16

And MiniMed Go means InPen connected to one of your two sensors?

Madison Smith25:21

Correct.

Scott Benner25:22

Which one do you use?

Madison Smith25:22

I'm currently using the Instinct. Okay.

Scott Benner25:25

And the other one is

Madison Smith25:26

Simplera? Simplera.

Scott Benner25:27

Okay.

Madison Smith25:27

So we have a choice between the two sensors

Scott Benner25:29

Right.

Madison Smith25:30

And the options.

Scott Benner25:31

And I do understand it works with Dexcom, but it the data is lagged?

Madison Smith25:35

That was with our prior system. Okay. So Dexcom data could come in, but it was on a a delay.

Scott Benner25:42

A delay. Right.

Madison Smith25:42

So now with the two sensor options we have in our portfolio Works. They're connected directly to the app, and they're in real time.

Kenny Fox25:49

Yeah.

Madison Smith25:49

And that piece alone has also helped us to develop more informed, actionable, sort of decision making.

Scott Benner25:57

It's a smoother process in general with both of your sensors.

Madison Smith26:01

Yes. And I because we're, for the first time, actually looking at not just sensor glucose values Yeah. But also the other part of what it takes to actually manage diabetes, which is insulin. So when did you take your last dose? How much of that dose is still actively working in your body?

Mhmm. And so instead of just, let's say, notifying you because your glucose is rising quickly or you've crossed some threshold, we can look at your glucose in the context of how much insulin you have on board, let's say. And maybe there's actually, we see more than 50% of the time when you were just if you just used a threshold based sensor glucose alert, there was no action to be taken because they've just eaten a meal and they've taken the insulin for it, or you've just corrected that high blood sugar and you need time for the insulin to do its job.

Scott Benner26:58

Right.

Madison Smith26:59

And so what this system does is actually reduces the, let's say, the alert fatigue

Scott Benner27:05

Yep.

Madison Smith27:05

And waits to find the right opportunities to alert you when there's action to be taken and then tells you what you need to do.

Scott Benner27:12

Now would be a great time to

Lane Desborough27:13

Yeah.

John Scholland27:13

To do something. Yeah.

Scott Benner27:14

So you've lived so long with MDI and nothing like this.

Kenny Fox27:18

Mhmm.

Scott Benner27:19

And now there's all this data in the world. Mhmm. Did it actually benefit you? Like, having the data, having the the automation, like, can you just from your personal experience, has it improved your a one c, your time and range, anything like that?

Madison Smith27:31

It has. I mean, it's improved my my overall glucose control. I would say, in a lot of ways, we had the I had the capacity to do the decision making that I was doing. Right. But now I get to be more hands off and wait for the system to identify an opportunity.

And when that opportunity comes, I take action. And so I'm say, like, I think about it less. I check less because I know that it's monitoring in the background, and when I need to do something Right. It engages me. So the less time I get to spend less time thinking about diabetes and all

Scott Benner28:10

the stuff. Of the of the benefit of the data and of the automation that comes to the impact. That's pretty awesome. Like, has it, like has it, like, personally alleviated anything for you? Is it made like, is it a measurable difference in your life, or is it just a nice thing and my health's better and I don't think about I I I don't know what I'm asking

Madison Smith28:28

you exactly. I mean and I also don't know that I mentioned this part, but I'm I'm a certified diabetes care and education specialist, a nurse, and I think that, you know, from a professional standpoint, you would think I have it all together. Right? Well But, like, I No.

Scott Benner28:46

I've interviewed enough people. I know that's not the case.

Madison Smith28:48

Well, exactly. Yeah. Yeah. That's where I'm going. Right?

So, like, I'm still a person living with diabetes, and and I it's not perfect. With everything diabetes comes with. Like, I can know the information, but it doesn't mean

Scott Benner29:03

You'll do it. Yeah. Yeah.

Madison Smith29:04

They do what I say, not what

Lane Desborough29:07

I do.

Scott Benner29:08

Everyone says that for a reason. I I used to have this, thing where I'd always wonder, like, why would my daughter, like, ride her pump out to the last possible second? Like, right now, I'd be like, why don't you just change it a little sooner? You know, you know, it'll be it'll be helpful, blah blah. And I mentioned one time to a friend of mine who's had diabetes for, like, almost forty years.

Mhmm. And she's also a therapist. And I said, you know, it's so frustrating. Like, I know if she just changed it a little sooner, she did this a little sooner, she'd have such better outcomes. And that therapist with almost forty years of diabetes living said, oh, I do the same thing.

Madison Smith29:38

Yeah.

Scott Benner29:38

And I said, why? And she goes, I don't know. Yeah. That that was sort of it. Right?

It's it's the living with it everything. So anything you can do that makes it not have to be front of mind Right. But is still getting the benefit Yeah. Of of all this data that's available. Yeah.

That's listen. I'm a huge fan of the MPEG.

Madison Smith29:55

I was

Scott Benner29:55

really I million percent because I believe exactly what you're saying is that a lot of times, places like this, these people we get to meet, it's lovely, but they are not exactly an accurate slice of the population. Right. And a lot of people don't wear pumps. Exactly. A lot of people.

And they don't not deserve to have what they could get out of all this. So, you know, I mean, if you were to if you were talking to a person who is you in the past Mhmm. Like, how would you talk your old self into trying something like this sooner? Because why because you didn't do it for a long time. Right?

But also Impen

Madison Smith30:28

It wasn't around when

Scott Benner30:29

I was first diagnosed. Right?

Newly diagnosed and overwhelmed: easing into it 30:31

Madison Smith30:31

But I would say so it well, I come back to especially, like, newly let's say you're newly diagnosed Mhmm. And I've been newly diagnosed, and I've also been the nurse educator sitting down with families that are newly diagnosed.

Scott Benner30:49

Sure.

Madison Smith30:50

And it's completely overwhelming.

John Scholland30:52

Mhmm.

Madison Smith30:53

You've been kind of given this diagnosis. In my case, I didn't even know what diabetes was, and now I'm being told I have it.

Scott Benner31:00

Yeah.

Madison Smith31:01

And I'm being given a vial and a syringe and, like, okay. Give yourself your first injection. Oh, and by the way, here's how insulin works, and this is when it spikes and it peaks, and you can do this and don't do this, and here's the formulas, and it's, like So much. Overwhelming.

Scott Benner31:17

And then and then would you like to stick a thing to you? Do you wanna get a CGM? Do you wanna get a pump? And you I listen. I hear from people all the time.

I I don't know how well you know what I do, but I've been making my podcast for twelve years. Right. I've interviewed nearly 2,000 people.

Madison Smith31:32

Wow.

Scott Benner31:33

Over and over again, they'll say the same thing. When my kid was first diagnosed, when I was first diagnosed, I didn't want anything on me. It felt weird. I didn't wanna be a robot. Often, they'll come around

Lane Desborough31:42

Right.

Scott Benner31:43

And realize the benefit of it.

Madison Smith31:44

Sure.

Scott Benner31:44

But in the beginning, like you're saying, they're being told all this stuff, all this terminology they don't understand. They're the shock of the trauma of what's actually happening to them. Let's not forget they might have crazy brain fog from high blood sugar. There's a lot going on. And they start off but often they start off the way they start and then never reassess it again.

Madison Smith32:04

Right.

Scott Benner32:04

And that that that to me is is kind of a shame that that, you know, you almost you almost walk the path you're upset on.

Madison Smith32:11

Yeah.

Scott Benner32:11

You know what I mean? So so back to it. What what do you tell that person?

Madison Smith32:15

Well, I I think that there's just so much to like, there's diabetes experts for understand. And so if you can have a system that is you know, your health care team helps inform how it should be let's say your therapy settings, how it should be configured. But your day to day interactions are you have a sensor that's telling you what your current glucose is. You're choosing your meal type, your meal size, or if you carb count, you can put in carbs, and it's recommending the dose.

Scott Benner32:51

Yeah.

Madison Smith32:51

But it's doing all that, you know, the informed decision making behind the scenes. So I I just think that there's a big opportunity to to give more support to the person to to allow you to kind of ease into the education, so to speak. Because as an educator actually, there's there was a study cited that people only retain about 30% of what they first learned.

Scott Benner33:19

It's 20% more than I remember, but go ahead. That's awesome.

Madison Smith33:22

And so imagine I mean, I've been the person that then goes home and you're kind of lost and confused, and you're hoping you're remembering everything and doing it correctly.

Scott Benner33:31

Yeah.

Madison Smith33:32

And then as an educator, you're hoping this family can go home safely. And

Scott Benner33:39

And then how do you start to walk them through the whole process slowly. Right?

Madison Smith33:43

But if we could have these I mean, I would just love to see these tools being used. Like, the more visibility we have, people can be aware of them, know that they have access to them, and then if it could be used as a tool even early in diagnosis

Lane Desborough33:57

Yeah.

Madison Smith33:57

To not put so much pressure on the patients or the persons with diabetes and the family to be these experts going out the door on day one.

Scott Benner34:08

Yeah. In pen, the the whole MiniMed goes system, like, it's a great entree where you get the health benefit without all of the burden of, like, what's all this stuff? Why do I have to remember all this thing?

Madison Smith34:20

Yeah.

Scott Benner34:21

So you'd go back in time and tell yourself, get an in

Madison Smith34:23

pen? Yes. I would tell my my health care team, give me an infinite diagnosis, not make me start with a violent syringe and kind of

John Scholland34:34

Listen. You're preaching to the choir.

Scott Benner34:36

I don't understand the concept of, like, make them struggle so they really understand it. Then we can give them a CGM. Like, I don't I don't don't get that. I think it's old it's probably older thinking, and I don't not understand it. But, you know, I I I've had people say to me, what if it all disappears?

I'm like, if it all disappears, we're in a

John Scholland34:56

lot bigger trouble than that.

Scott Benner34:57

So don't worry about it. Like, I think you're gonna be okay. I like the idea of listen. You can't minimize like, joking aside, you can't minimize the the information and the education that comes back from wearing a CGM. Yeah.

You learn about diabetes so much more quickly wearing a CGM. Mhmm. So much more quickly. I using the the Impen app. So you can see I put insulin here.

I did this. You know, like, You

Madison Smith35:19

start to see how

Scott Benner35:21

starts to just make sense.

Madison Smith35:22

Impacts the glucose, how meals impact

Scott Benner35:25

the blood. Information helps you make better decisions personally and with your diabetes care. Exactly. And it's it's to me, it's all just better. Okay.

Madison Smith35:33

And then everything that's being collected too goes into reports that then you can bring to the health care team. And instead of sitting down and feeling like, you know, it's 21 questions and

Scott Benner35:44

you're thinking here? Do you remember what you ate last Saturday? I don't remember what I had. Yeah. Right.

Madison Smith35:49

For breakfast. Yeah. And you want me to remember why my blood sugar went high two weeks ago. I don't you're gonna try to use that to make a decision around my therapy. So having that full picture

Scott Benner36:02

Yeah.

Madison Smith36:02

I also feel like you can get to the more meaningful conversations that'll actually help address, is it a behavior, is it an education, or is it a a settings change? Right. And it's not always a settings change.

Scott Benner36:15

It's awesome. Right. Now I really do appreciate your time and your insight. Thank you so much. You're delightful.

You should come back sometime Okay. On the regular podcast, not when we're here at ADA I'd about this more.

Kenny Fox36:25

Thank you so much.

Lane Desborough36:26

Thank you

Scott Benner36:26

so very much. And thank you so much to Sugarpixel for making all this possible. Thanks so much, guys. Bye. Kenny, how are you?

Kenny Fox in the Loop House: laid off to helping full-time 36:39

Kenny Fox36:39

I'm good, Scott. Nice to see you in person for the first time.

Scott Benner36:41

Never met Kenny in person. But it's crazy.

Kenny Fox36:43

This is your first conference.

Scott Benner36:45

So I have. This is my first ADA. It is massive, and I cannot believe all these people are here. It's my first as well. You've never been before either.

I have not. Yeah. So let's find out a little bit about you. First, do you have kids with diabetes?

Kenny Fox36:59

I have four children. One, my second child, Tessa, has just turned 13, and she has type one. She's had type one for going on almost eight years or at seven and a half years, I think.

Scott Benner37:09

Eight years. Yeah. And what does she do for her management?

Kenny Fox37:12

So she's using the DIY loop system, and we've been using that since about six months after diagnosis. Okay. Yeah. She got started with injections and a Dexcom, and then immediately got the the pods. And about a month later, we started looping.

Scott Benner37:27

So she's been looping with an Omnipod for years?

Kenny Fox37:30

Seven years. Yeah.

Scott Benner37:31

Okay. And you I know you because you came on to JuiceBox to talk about your knowledge of how to loop.

Kenny Fox37:39

Seven times.

Scott Benner37:40

Yes. Well, you've been on a lot. Yeah. Kenny's been on episodes called Fox and the Loop House if you wanna listen. They're fantastic.

But why do you know so much about loop? Like, why are you the person to talk to about how to actually use it day to day?

Kenny Fox37:54

I think part of it is I'm a technology person by trade, and I've always been attracted to how do we use technology practically in our lives. So when I worked at a credit union, it was all about, okay. We have this tech, how to and then and understanding how someone did their job and figure out how to apply it. Mhmm. Just streamline their life, basically, their day to day job in technology.

And so when Tessa was diagnosed, my go to was I need to understand the mechanics, the flow, the workflow, and that's just how I coped was part of it, was just understanding diabetes mechanics. And by trying to look all that stuff up, I found all the DIY apps, all the information, and then I ended up looping. And then from there, it was all just like I basically treated Tessa's diagnosis like a like a game or a problem to be understood because that's all I knew how to do once I could see the data.

Scott Benner38:42

So are you telling me that at her initial diagnosis, you felt a little hopeless or like, you weren't helpful?

Kenny Fox38:49

Yeah. It was very overwhelming at first, but for us, my wife understood diabetes. My sister-in-law has type one diabetes, and so she knew to check my daughter's blood sugar when she started getting cranky and losing weight and I need to go to bathroom. And then not wanting to eat dessert was actually when we got figured that one out. And so she tested her blood sugar.

We had a meter in the house from before

Scott Benner39:12

Yeah.

Kenny Fox39:13

And found out she was diabetic. And all my wife said is pack a bag. My sister had to stay the night a few nights, and Tessa has type one diabetes. And I'm like, I don't know what that means.

Scott Benner39:23

Right.

Kenny Fox39:23

So I took her to the ER. They, like, moved us up the chain. They saw her blood sugar and immediately told the guy who popped his head in that she's next. And so I go, I the severity hit me. And then as she's sitting there, I just tried to keep her calm, gave her a a movie to watch on her iPad, and I'm, like, googling what is type one diabetes and how do we fix it.

So What

Scott Benner39:43

was the movie? Do you remember

Kenny Fox39:44

it? I don't. Actually, I should ask Tessa if she remembers.

Scott Benner39:46

So the movie that we ran over and over again when Arden was diagnosed, that my wife can't watch it. It makes her sad, But it was sky high. So but my daughter will watch it still. So sky high on a on an iPad or a I maybe not even. Actually, I'm pretty old.

It was a compact DVD player that we played sky high

Kenny Fox40:06

on over the did period. You have to watch it?

Scott Benner40:08

I mean, it was countless. It's all we had. It just ran and she was two. So it just ran over and over and over again.

Kenny Fox40:14

But Tessa was five and a half, and our process was we got diagnosed, and we were only in the ER for two or three hours. And they said gave her a couple injections and said, go home. We'll see you tomorrow in the afternoon, and we had a four hour session with our

Scott Benner40:27

That was that.

Kenny Fox40:28

That was that.

Scott Benner40:29

It's pretty awesome. But when this is over, you realize, I don't know what I'm doing. I'm gonna dive into the thing that I'm maybe more adept at. It ends up being this do it yourself algorithm. And now I feel like there's nothing I couldn't ask you about loop that you wouldn't understand, and you have a business around it now as well.

Kenny Fox40:45

Yeah. Somebody came up with a good name called Fox in the Loop House. So I grabbed that. And so a couple years ago, in October 2023, I got laid off from my job. And I'd been always thinking about trying to figure out a way to help people even more than I already had with all the years in the DIY community.

And I thought, well, I could I could probably do this. If I could do it all the time without stealing time from my employer Right. That would probably be more fair for everyone. And so once that happened, I took the severance and then made a plan to start rolling stuff out try to give it a go.

Scott Benner41:15

So now you're helping people virtually?

Kenny Fox41:18

Or Yeah. It's all virtual. Okay. I mean, I guess if someone would come over to my house, we could do that, but it's all virtual. And right now, my I help people with building because I know people wanna help building when they get started.

And being a tech person, that actually was, like, the easiest part to do. So we set up the build if they wanna do that. And then mostly, it's, teaching you how to use Loop in your day to day life, but at the same time understand the the data so you know what settings to change.

Scott Benner41:44

Okay.

Kenny Fox41:45

So there's a lot of application. I like to say I focus on teaching you how to adjust your settings, which is my focus. Mhmm. But in practice, you gotta know how to just live life, understand diabetes variables, and apply them to the system.

Scott Benner41:56

Yeah.

Kenny Fox41:57

And so I do that in, two ways. I have created a video course essentially

Scott Benner42:01

Mhmm.

Kenny Fox42:02

That we watch, once a week, and then you either join a group, and we do it through a group method where we meet once a week in small groups, or, you can do private coaching, and then there's some way to get help between in case you have a question come up.

Scott Benner42:14

Generally, how long does it take people to go from the build part to the part where they're comfortable enough to have the outcomes they're looking for?

Kenny Fox42:22

Yeah. Building is, I got it down to about two, two and a half hours, but teaching how to use the system takes a little bit longer. I it's a seven week process is what I walk people through, and I would say that everyone that goes through it as everyone's been happy, and they feel very confident in what they're doing. But I would say there's about a third of people that when they finish, they still there was so much new stuff, just basic diabetes mechanics Sure. That they need to go back and refresh.

And so it takes them a few more months to either watch the videos again, or I have a membership on the back end if they wanna join and get some help and stuff.

Scott Benner42:56

Refreshing up till the comfort sets in.

Kenny Fox42:58

Yeah. Yeah. They're adjusting their own settings by the time the seven weeks is over here and there. At least they're basal Yeah. And making some good adjustments in meals.

But a few people linger a little bit, but I'd say most people are pretty confident in changing their basil and carb ratios.

Scott Benner43:11

What do think what's the thing you see most people trip on? Where where do they get stuck?

“You’re not as special as you think”: recounting carbs 43:16

Kenny Fox43:16

I would say a lot of the adults, it's counting food. So it's either they some of them don't want to enter all the carbs that are required because they feel like it's, like, oh, it's not healthy enough. I shouldn't be eating it or something like that. There's some fear around entering all of them food.

Scott Benner43:34

Do you think it's do you think that they're worried about the the the amount of insulin or then does the number scare them? It's both the amount of insulin and the calories sometimes. Okay.

Kenny Fox43:45

So they feel like, oh, well, I shouldn't eat that. Then they don't wanna enter all of it. So they enter thirty grams, but it should be fifty. So there's a couple different reasons that my adults I try to put them all in the same group in my group coaching. And so I'm learning more about their hesitancy, especially if they've been diabetic for a long time.

I had one recently that told me, I was just told a piece of bread is 15 grams, and that's the only thing she's ever been told. So everything is, like, either 15 grams of bread or nothing.

Scott Benner44:12

Okay.

Kenny Fox44:12

And so her counting was way up, and she eventually like, I had her had her adjust her settings, and then she's like, you know what? I looked at the package on this bread I'm eating. It's healthier bread than I used to eat when I was a kid, and it's 20 grams. And I looked up this other thing I have for breakfast, and I had oatmeal, and she had a pretty flat line. So once she she's like, it's amazing.

I enter all my carbs, and then I was okay. Yeah.

Scott Benner44:31

So you think if she doesn't take the time, in this example, if she doesn't take the time to just reunderstand things, she might go on like this forever.

Kenny Fox44:40

Yeah. Yeah.

Scott Benner44:40

Yeah.

Kenny Fox44:41

With that calibration, that forcing people to calibrate to count, you know, a lot of them pick it up after just, like, a week or so of really putting some effort in. Right. But they hadn't done it in a while. So I usually encourage people in general, like, if you just take couple days once a year and maybe kind of pretend like you're a brand new diabetic

John Scholland44:59

Yeah.

Kenny Fox44:59

Just reset. And especially for parents that have kids that are growing up, this is where someone get hung up is they were diagnosed at two, three, or four, and now they're eight or nine, and they're eating twice as much. And so I had one mom in my group recently realized that she she's like, I'm the problem because she thought the lunch she's packing her daughter was 35 grams, but she's now four years older than that, and she eats 55 grams for her lunch at school. Simply counting it all and the serving sizes, all of a sudden lunch was looking better.

Scott Benner45:25

Funny, isn't it? Because you're sitting here talking about it. It seems so obvious.

Lane Desborough45:29

Right.

Scott Benner45:29

But it's not once life gets going and

Kenny Fox45:31

people Yeah. You're rhythms.

Scott Benner45:32

You you find a rhythm, you get into it, and then you start thinking, oh, the pump doesn't work. This doesn't work. I this is just diabetes. Yeah. That's the one I find that mostly people fall back on.

This is their expectation. This doesn't go well. It's not supposed to. And I'm like, no. I think you're just maybe not putting the insulin at the right time or doing this or that.

It is really interesting to watch somebody do the thing they do and be able to step back from a dispassionate third party situation and look and go, oh, actually, what's happening here is you don't like thinking that you're not eating a healthy meal. So you're making a smaller number to lie to yourself into feeling better. It's really something. It's interesting you saw it that way.

Kenny Fox46:10

Yeah. The the the most common situation I see is a combination of there's the mystery fat protein rises. They they're a mystery to someone else, but I understand kinda where they are once you break down what they're eating and the timing of them. And so over time, either themselves or their endo has increased their basal rates all day long. Yeah.

And so then they occasionally go low when they mix up their meals, or they're always going high when they eat more because it doesn't scale well when their meals change or when life changes. So the classic situation is someone comes in, we look at the data, and we end up scaling all their basal rates back a fair amount, making their carb ratios stronger. And then for loop specifically, we end up adjusting a few more things to make sure that the meals are properly tracked and managed in loop, but the the bulk of the success comes from modifying the basal rates and simplifying them. Some people have, like, ten, twenty basal rates in a day. Yeah.

Just getting a couple, like, a night like, a sleeping one and a daytime one, scale back the daytime one, make the ratio stronger, add and in some fat and protein carbs, and all of a sudden, poof, they're

Scott Benner47:11

It just works.

Kenny Fox47:11

They're good. Yeah.

Scott Benner47:12

I love talking to you about this because you it just rolls off your tongue. And I use too many floury words to get to the same ideas, most of the time. But, I mean, I've been for years just telling people, like, it's timing, it's amount, it's understanding the impact of your food. It's kind of it, really. You know, be flexible.

Don't be afraid to knock the high blood sugar down. It it I appreciate the way you do it. So it's foxinthelouphouse.com?

Kenny Fox47:39

Foxinthelouphouse.com. There's a couple free resources if you wanna check that out. I got a basal rate cheat sheet, kinda most common basal rates and kinda tips for why it's like that. And then there's another one around meal absorption time, which in loop, you declare how long a meal is supposed to be. Right.

And so I give, some bullet points on how you can pick the right absorption time, and there's in that one is a really important one for sleeping, is is a nugget around how we manage dinner or evening meals. They tend to be a little bit slow. Everyone struggles with going low before bed and then rising after.

Scott Benner48:11

Right.

Kenny Fox48:12

So, I'll give some tips around modifying your absorption time and how you would count food in that same handout. So you guys can find that on my website.

Scott Benner48:18

Very nice. Give me one now. What's a tip that you like, if I walked up to you and I said I'm struggling with loop, where and I don't know. I'm I I don't know. I'm high three hours after I eat.

What what would you look at first?

Kenny’s four-step Loop framework: start overnight 48:31

Kenny Fox48:31

So I always I have a framework I give people. It's four steps. And then we just I have to say someone, look at your graph and ask these questions, these things in order. And the first is well, I have a step zero that I'm building out. It's check your pod site because inevitably, the pump site's not working.

Scott Benner48:48

Right.

Kenny Fox48:49

For some for a lot of things. So learning how to check that's good. And then first one is basal. And so we're always looking at the insulin onboard or the active insulin is what Luke calls it. Mhmm.

Overnight is what is the easiest. Kinda your three, four, five in the morning if you have a morning rise, kinda get before that.

Scott Benner49:06

Yeah.

Kenny Fox49:06

Like, the flat spot when most meals should be chill and just kinda see where are you. If you're near zero insulin onboard and in your range that you've asked Luke to put you in, you know, 87 to 93 or a 100 to a 110, whatever it is, then you're probably good. And then I always just say, okay. That means your nighttime basal's probably fine. Mhmm.

But if there's lots of them, then we say, well, how do we how do we average those out to get to the rate that's basically working around that time? And then after that, it's a lot of that, the pushback comes. So what about the what about the rise at night after I go to sleep? Right. And because everybody has to crank their basil up for that.

And so, then we start talking about fat and protein for dinner. So it's really just a overnight basil. Daytime is inevitably for, like, I'd say ninety percent of people. The daytime basil is a little bit lower Mhmm. Than the nighttime one.

Some people, it's not true, but My daughter's opposite. Yeah. Yeah. Some people have kind of a stress of the day, and they end up going up a little bit.

Scott Benner49:58

Right.

Kenny Fox49:58

There's different reasons why, but I always ask people to try either one rate or two and with a slightly lower one during the day. And then we kinda start entering meals well, and that's what I I thought I only had, like, couple minutes with people. That's what I would tell them is Okay.

Scott Benner50:12

You know,

Kenny Fox50:12

pick one or two rates, one for sleeping, one for awake, and then, read my little handout on entering meals. Yeah. And then so you can enter some fat and protein, and you'll be good to go.

Scott Benner50:22

I'm smiling because, like, as you're talking through all this, it I when when I started doing this, I didn't know what I was doing. I had no idea about diabetes. I didn't know anything about it. Everything that I talk about on that podcast now is just hard to earn, like, through experience and hashing it over and over again, trying to figure out the basics. And the basics really are get your basal right.

You know, do this, do that, look overnight, find stability, take that into the daytime. It really is awesome to hear you talk about

Kenny Fox50:48

it. It's a lot of fun now because it's, it helps me because I have helped people in the community. I think I had, like, seven or 800 Night Scout sites bookmarked in my browser at one point before I started this business. Really? Just looking at people's stuff or whatever.

Scott Benner51:03

Yeah.

Kenny Fox51:03

And then now with meeting with people and getting to sit with them for seven or eight weeks and really digging into their settings, asking about their lifestyle, it's nice to see that these basics do apply to most everybody Yep. And then we can very quickly find the outliers. And as I'm working on documenting the more common outliers so people have a place to go in that Basal cheat sheet, to know where to where to start if they happen to be that special. But I tell everybody, you're not as special as you think, so please try and do basic settings and then kinda roll from there.

Scott Benner51:32

Yeah. When people tell me your diabetes may vary, I'm like,

Kenny Fox51:35

not that much. Doesn't vary that much. Yeah.

Madison Smith51:36

Yeah. Yeah.

Scott Benner51:36

Well, I really appreciate you doing this with me. I wanna say just hearing you talk about how you used to help people just not you know, saw all those night scout things. I think people wouldn't know that, like, most of my daughter's health is because people came on to the podcast and shared their thing. Like, I got to build my understanding through talking to people. It sounds like you've helped build yours

Lane Desborough51:58

Yeah.

Scott Benner51:58

Through helping people

Kenny Fox51:59

as Very similar. Yeah. I saw what was working, and I just pinged a couple people in the early days of using Loop and be like parents that were struggling, and I'm like, hey. Can we try some of the stuff I'm trying? And then it evolved and grew, and then I'd run into really smart people in the community that would, like, enhance my understanding of how the algorithm works.

Scott Benner52:17

Right.

Kenny Fox52:17

And then with a little bit of, like, okay. Fine. I'll go look at the code because I can. Mhmm. I'd start reading some stuff.

But mostly, I just found the smart people, and so it's a very community effort. And so I try to give back as much of that information as I can on my website or in handouts, and I do free free consultations. There's a button on my website to do that. You schedule forty five minutes with me. We'll talk about whatever you want about Loop, whether it's, like, diving into some settings or just, like, what is Loop like?

I'm not sure I wanna do it. We'll talk about anything you want, and then I'll just share my programs in case you're interested. And if you're not, that's fine. Like, no harm, no foul. I just really like talking to people.

Scott Benner52:53

It's awesome. Me too. Well, Kenny, thanks for joining me here at the Sugar Pixel booth.

Kenny Fox52:56

Yeah, man.

John Scholland52:57

You should

Scott Benner52:57

come back on the podcast again, we should chat some more. We do have plans, don't we?

Kenny Fox53:01

We talked about doing, like, a little series of q and a or something

Scott Benner53:04

like that. Yeah. We'll figure

Lane Desborough53:05

that out.

Scott Benner53:05

Well, thanks so much for doing this, and thanks to everybody for listening and visiting us here today at the SugarPixel booth. If it wasn't for SugarPixel, we wouldn't be able to do this. So check them out and, learn all about their new device. Thank you so much. Thanks again, Kevin.

Kenny Fox53:20

Yeah.

Scott Benner53:21

We're all set. Alright. John, don't you introduce yourself because I'm super afraid I'm gonna mispronounce your last name.

John Scholland & Luna: automation only while you sleep 53:27

John Scholland53:27

Thank you. My name is, John Scholland. Mhmm. Scholland, like, show time or something like that.

Scott Benner53:32

Okay. Okay.

John Scholland53:32

What's that?

Scott Benner53:34

Where do you work?

John Scholland53:35

I work for a company called Luna Diabetes. Mhmm. Started it about five years ago. I'll tell you more about it. It's about trying to help people that are using insulin pens, is most of us living with diabetes, how to get the get able to take advantage of automation.

Scott Benner53:50

That sounds crazy. So I can't wait to ask you more about that. But I first, let me find out a little bit about yourself personally. You have type one?

John Scholland53:56

I have type one about forty years now. Forty years.

Scott Benner53:59

Have you always worked in the diabetes space?

John Scholland54:01

No. I didn't I didn't think I would ever work in diabetes. I started my career in digital marketing and advertising. Really? So a whole whole new thing.

Scott Benner54:09

How did you make the shift?

John Scholland54:11

You know, I just got frustrated that some of the products that I wanted were for myself or things that problems I had weren't being solved. And so I made a I made a cap for an insulin pen that told me when I took my last dose of insulin.

Scott Benner54:24

Really?

John Scholland54:25

And I started showing it to people, people wanted it, and all of a sudden, I was a medical device entrepreneur.

Scott Benner54:29

So you don't work for Luna. You created Luna.

John Scholland54:33

I created Luna. Yeah.

Scott Benner54:34

Oh my god. So this is the Okay.

John Scholland54:35

Next one, second company upgraded in diabetes.

Scott Benner54:37

No kidding. Alright. So you just said something that, like, fucked my mind. How is an insulin pen gonna work as an like, of just tell me what the idea is because I don't even know. I don't

John Scholland54:47

think I understand. So the first thing I was telling you about Right. Is we made it was called TimeSulin. Okay. And we made a cap for any insulin pen that told you when you last took your insulin dose.

Okay. We subsequently sold that to Bigfoot Biomedical and made a really cool product that then Abbott bought and the world hasn't yet seen.

Scott Benner55:07

Really?

John Scholland55:07

So that's hopefully coming.

Scott Benner55:09

And it's as simple as when you uncap the pen, it what marks the time? And then so when you look again, oh, I last took oh, that's really kinda simple and brilliant.

John Scholland55:18

That was the original product from a long time ago.

Scott Benner55:20

Okay.

John Scholland55:20

And the stuff

Scott Benner55:21

So you sold you sold that off, and then you said, I don't wanna go back to work. I'm gonna invent something else, or did you have an idea?

John Scholland55:28

There's a couple hop hops along the way. I worked for a CGM company for a while.

Scott Benner55:32

Okay.

John Scholland55:32

But then, yeah, we came up you know, I was really I was early in building the do it yourself automated systems.

Scott Benner55:38

Mhmm.

John Scholland55:38

And it just totally changed my life Yeah. Of of having these automated systems. And I was always frustrated that more people weren't experiencing it, more that weren't seeing it. I mean, at first, it was you have to build it yourself. It was hard.

There's a technical Yeah. Barrier to do it. Now, of course, you know, whether it's Tandem or Mimatronic or Beta Bionics, there's really great products that do it. But still so few people are willing to wear a pump. And I want more people to experience what it feels like when you live with diabetes, just be able to go to sleep and not be nervous, not be scared, not be stressed about it.

Scott Benner56:12

Okay.

John Scholland56:12

And so Luna, what we've created, is about bringing the best of insulin automation to people that want to continue to use pens during the day.

Scott Benner56:22

I've been doing this a long time, John, and I normally think I know where people are going to go when they're explaining something, and I can't imagine how you're going to tell me this works. So please lay it

John Scholland56:33

out for me as simply as you can. Yeah. So during the day, you use your pens exactly as you did before. If you're type one, you're taking your basal and your bolus. Type two, maybe basal only.

You might be using a GLP one. And before you go to bed, you fill it with rapid acting insulin. We've made the world's smallest patch pump.

Scott Benner56:49

Okay.

John Scholland56:50

And when you're sleeping, it talks to your CGM. And if you need insulin to get you back to target, it will give you these microboluses of insulin while you sleep.

Scott Benner56:58

So is there an an like, an inset somewhere? Like, you're wearing a and then you just connect the pen to it? Nope. You fill it from your pen,

John Scholland57:08

and then you you put it on. So imagine you're

Scott Benner57:10

starting to get there. So I'm wearing something you're wearing something on your body, and it knows everything that happened during the day. You put some insulin into it, and overnight, it uses that insulin to fight highs.

John Scholland57:22

Yep. And it also helps with lows. And so there's some other tricks up our sleeve to help with lows. So

Scott Benner57:28

How does it help with lows?

John Scholland57:31

We have some tricks up our sleeve for

Scott Benner57:32

doing that. You can say yeah. Okay. Yeah. You brilliant?

What happened? Did you know you were brilliant?

John Scholland57:38

No. Look. It's just, you know, I've lived with diabetes a long time.

Scott Benner57:41

Yeah.

John Scholland57:42

And I want more people to be able I you know, I was lucky. I got good health care, and I'm able to to get the medications that I need. Yeah. But so many people are having such a tough time with it. I feel obligated to try to come up with these ideas and try to make it happen.

Scott Benner57:56

So you just you've taken your experience of living it with so long and saying, would I like to happen? What would I need to happen? And then I listen. I see the same thing. It's easy to fit in these settings and think everybody uses an insulin pump, but a majority of people with type one diabetes do not use pumps.

John Scholland58:10

Do not.

Scott Benner58:11

Right. And I listen. I don't know what you're running, if you have a pump or what you're doing, but, like, my daughter's using a DIY algorithm too. And they are they have been and are fascinatingly good for her health.

John Scholland58:23

So great.

Scott Benner58:23

Yeah. Absolutely.

John Scholland58:24

So So the real insight for us was the following is is we were looking at data from one of the pump manufacturers in their study. Yeah. And they ran a study where they were they had a group of people that wore their normal system. No automation. Mhmm.

And then automation only at night. They turn it on before they went to bed and turn it off in the morning.

Scott Benner58:46

Yes.

John Scholland58:47

And what the data showed was that over 80% of the improvement to glucose happens at night when you're sleeping

Scott Benner58:55

Yeah.

John Scholland58:55

Which is very dramatic. Right? So if you're wearing a CGM, during the day, you do about as well with a pen as you do with the pump. Mhmm. The pumps are are they don't do very much at and it just really changes at nighttime.

Scott Benner59:07

Right.

John Scholland59:07

And so that was the really key thing of, woah. If you can give me 80% of the benefit of a tandem system or a Medtronic system at night, let's make that happen.

Scott Benner59:16

You you don't know me, I imagine, but, like, I've been making a podcast for a very long time, and I've been telling people forever, like, the first thing we wanna do is get your basal right. But then after that, we gotta figure out overnight. Like, get over you can steal so much a one c overnight is the way I think about it. Right? And then what you learn overnight about your settings often applies easily to the daytime, and then it takes you know, people don't they don't want a basal test.

They don't know how to do things. Their doctors don't help them with their settings very much. Right? Yep. And it just becomes so you figured out that that, and then I still can't do you have the device with you?

John Scholland59:49

It's in my backpack over there. Gotta I gotta go up and get get

Scott Benner59:52

it for me? Sure. Of course. Can't imagine. We'll edit this part out of you walking over, but

John Scholland59:56

I thought I had one in my pocket. I did. Yeah.

Kenny Fox59:59

He's a wizard.

Scott Benner1:00:02

Can you hear what I'm saying? This man might be a wizard. Hold on a second. So

John Scholland1:00:09

there's stuff in this box that I don't wanna show.

Scott Benner1:00:13

Okay. Sure. Keep out whatever you need to

John Scholland1:00:17

so here it is. So this is the world's smallest patch pump, and you use it with a single use reservoir like this.

Scott Benner1:00:22

Okay.

John Scholland1:00:23

So before you go to bed, you'll fill this up with, rapid acting insulin.

Scott Benner1:00:27

Mhmm.

John Scholland1:00:28

It holds 20 units. The average overnight need for someone with type one so this is in addition to your basal. Right? Okay. So the average need is 1.6.

We put into up to 20. Okay. Connect it with this device. This is a there's an actual pump, and then you put it on your body.

Scott Benner1:00:43

How long does it stay on for?

John Scholland1:00:44

Just while you sleep. That's it. Do you take it off in the morning?

Scott Benner1:00:47

Fill it, put it on at bedtime, get up in the morning, take it off, and it manages high blood sugars overnight, keeping your blood sugar down, giving you better stability, better overall a one c, better health. And you're telling me that there's a way that it might help with Lowe's, but you can't share with me what that is yet. Yeah. I mean, look.

John Scholland1:01:05

If you if you're, yeah, if you're avoiding big boluses, if you have your basal titrated bowel, you are gonna increase your time and range. Yeah. You're just gonna every night, you just this is your reset button every night for diabetes.

Scott Benner1:01:19

Do you imagine that this will be an entree for MDI users that make them think maybe I should try an insulin pump, or do you think that people like, what is your finding when you talk to people? Do not wanna wear pumps but wish they had better control? Generally, it's

John Scholland1:01:32

do not wanna wear a pump. Okay. And are there gonna be people that try this and say, wanna wear an Omnipod? Sure. And are there gonna be people that wear an Omnipod and say, don't wanna wear it twenty four seven?

Sure.

Scott Benner1:01:42

Maybe that too.

John Scholland1:01:42

So this is sleep only automation. I know it's just it hasn't existed before. Right? You you you're either gonna go wear a pump and all the the cost and the complexity that that is. Yeah.

But great. I mean, pumps work. Or you're stuck with no technology, no help, and going to bed at night just going, oh, man. Am I gonna make it?

Scott Benner1:01:59

Yeah. It it always strikes me that way too. It's it's all this way or all that way. All or nothing ever in the middle. Right?

Nothing's standing. Yeah.

John Scholland1:02:05

So we're creating this new therapy that sits in between, and and people are loving it.

Scott Benner1:02:08

And so and what is it how does it make the decisions overnight? Is it by talking to CGM, or is it also by knowing how much insulin you've had during the day, what your basal is? Like, the what is it thinking about?

John Scholland1:02:19

So it's speaking to your CGM. Yeah. And then we have our we've developed our own algorithm, which is that determines how much and when to give insulin. Okay. And importantly, we like we've really rethought the experience of insulin pump therapy.

When you start the first time you use this Yeah. All you have to do is enter one thing once into the system, and then it starts learning about you. When you put it on at night, you don't have to take out your phone. You don't have to prime it. You're not you just fill it, put it on, take it off.

So it's super simple. There's no settings. There's no targets. There's no ISF. There's no carb ratios.

There's none of that stuff.

Scott Benner1:02:53

Is the brain inside of it, or do I have an

John Scholland1:02:55

app on my phone? Brain's inside of it.

Scott Benner1:02:57

Inside of it. Yep. It feels like magic to me. Like like, seriously. And this all just came to you one day, you were like, you know what would be great?

And that's where this idea started.

Kenny Fox1:03:07

How do you how do

Scott Benner1:03:08

you go from like, I don't imagine you I mean, maybe you are, but you're not a product engineer. Right? Like, what do you do when you have that idea? Like, where do you like, when you say to somebody, I need to build a thing, you'd how does that all work?

John Scholland1:03:20

Yeah. So, I mean, now I've been doing this for a while. So so we're in San Diego. We have the most exceptional team of engineers that are have responsible for many of the products that you see around here. Sure.

So some of us, it's our fourth company together. We have a team of of just outstandingly committed mechanical engineers, electrical engineers, and get a team to do it. But it's it's hard. You know, there's clinical there's big clinical studies Yeah. Takes take cost a lot of money

Scott Benner1:03:46

to do it. Where are you at in that process?

John Scholland1:03:49

We have about seventeen hundred nights of use of this. We just have some new studies starting next week. Okay. And so people are using it, and people are liking it. And we're on the path to launch it as quickly as we can.

Scott Benner1:03:59

Do you imagine running this business and doing the manufacturing and the or do you imagine selling it to somebody?

John Scholland1:04:06

Never know. Yeah. Yeah. I mean, we're gonna we're I think we'll probably launch it ourselves.

Scott Benner1:04:09

No kidding. Yep. What's the time frame do you think?

John Scholland1:04:11

As quick as we can. That's awesome. Know. Just sometimes it slows down. Yeah.

Doing as quick as we possibly can.

Scott Benner1:04:17

That's it. Where can people learn more about it?

John Scholland1:04:19

Lunadiabetes.com is our website. Yeah. Go check out the product.

Scott Benner1:04:24

When you have more to share, would you come on the the full podcast and talk to me for an hour about it? And, like, sure. Yeah. Oh, that would be awesome. I really appreciate that.

I know you have to run. Like, people told me you're a little bit on a time crunch. Yeah. But but thank you so very much. That's awesome.

And thanks to SugarPixel for making this possible. Thank you, guys. That's awesome.

Scott Benner1:04:48

To learn more about the Sugar Pixel, please go to my link. It's in the show notes. Customtype1.com/juicebox. There's a brand new actually, there's two brand new SugarPixels. One with a big beautiful color screen.

The other one's more portable. They connect now in hotels. I know people wanted that as an addition to the SugarPixel. John brought it to you. Speaking of John, thanks so much to him and SugarPixel, the entire team for having me out at ADA.

We're also gonna get together at Friends For Life, meet us there if this comes out before Friends For Life. It's a very loud car going by. Won't be much longer. My studio is just about finished. If I could just stop going to these events, I'd have time to finish up.

Then no more noise. What else I got for you? Check me out on Facebook, juiceboxpodcast.com. We have a private group with over 85,000 people, and I think you would love it. Follow on Facebook.

Subscribe or follow in your favorite podcast app. Check me out on Instagram. I think that's all I got for you.

Scott Benner1:05:49

I hope you enjoyed this.

Scott Benner1:05:50

I hope you check out customtype1.com/juicebox. And, of course, I'll be back very soon with another episode of the juice box podcast. In fact, I believe coming up next week is the longest episode of the podcast ever. I think it clocks in two hours and forty five minutes maybe. See if you can make it to the end.

Key Takeaways
  • Four separate short conversations, one booth. This isn’t one long interview — at his first ADA, Scott recorded four quick (~10–15 minute) chats back-to-back at the Sugar Pixel booth: Lane Desborough on creating Nightscout, Madison Smith on smarter MDI, Kenny Fox on DIY Loop, and John Scholland on Luna’s overnight automation. Each stands on its own; the throughline is the people quietly building the tech behind modern diabetes care.
  • The heaviest part of diabetes is cognitive, not physical. Lane Desborough — the engineer behind Nightscout — calls it a “thinking disease,” and argues the point of good technology is to give people their attention back rather than add one more thing to check. His line: “the best app is no app.”
  • MDI can be smart, too. More than 70% of people with diabetes use pens. Madison Smith — a CDE and nurse who lives with type 1 — works on connected tools (an InPen paired with a real-time CGM) that track insulin on board and time alerts to when action is actually needed, cutting alert fatigue without a pump. Ask your care team what smart-pen options fit you.
  • Get back to basics, in order. Kenny Fox’s Loop check starts with the pod site, then basal: on a flat overnight stretch, if you’re near-zero insulin on board and in range, your night basal is probably right. He often simplifies people to roughly two basal rates (sleep vs. awake) and has them recount carbs honestly — stale numbers (“bread is 15 grams”) quietly break dosing. “You’re not as special as you think.” Confirm any changes with your team.
  • Overnight is where the biggest gains hide. John Scholland built Luna around pump-maker data showing 80%+ of automation’s glucose benefit happens while you sleep — echoing Scott’s long-standing “get your basal right, then win overnight” approach. What you learn about your settings overnight often applies to your day. Work any settings change out with your care team.
Resources & Links
  • Sugar Pixel (CustomType1) — Episode host/sponsor — the glucose display device, now in two new models. Scott’s support link.
  • Luna Diabetes — John Scholland’s sleep-only insulin automation — the world’s smallest patch pump, worn overnight only.
  • Fox in the Loop House — Kenny Fox’s DIY Loop coaching — free 45-minute consults, plus basal-rate and meal-absorption cheat sheets. (Verify spelling.)
  • MiniMed Go / InPen (Medtronic) — The smart-pen MDI system Madison Smith works on — links an InPen to a real-time CGM (Instinct or Simplera).
  • Nightscout — The open-source remote-CGM project Lane helped create — the “#WeAreNotWaiting” effort.
  • Juicebox Podcast Facebook Group — The private group Scott mentions — 85,000+ members.
Nothing you hear on the Juicebox Podcast should be considered advice — medical or otherwise. Always consult a physician before making changes to your health care plan. Read the full disclaimer.
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