#665 Type Two Stories: Leanne
Leanne has type 2 diabetes and a daughter with type 1 diabetes.
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Scott Benner 0:00
Hello friends, and welcome to episode 665 of the Juicebox Podcast.
Today we're going to be speaking with Leanne. She's an adult living with type two diabetes. And I am genuinely excited to bring you this conversation. I'm going to explain why after the music. But for now, I just need you to remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. We're becoming bold with insulin. If you're a US resident who has type one diabetes, or is the caregiver of someone with type one, I need you to go to T one D exchange.org. Forward slash juicebox and fill out their survey. That's all I need you to do. When you do this, you're going to be supporting people with type one diabetes, you'll be supporting the show and you'll just be doing a good thing. The survey is completely anonymous, HIPAA compliant, and it's not hard. I mean, you take those little buzzfeed quizzes, this is way easier, and it actually helps somebody T one D exchange.org. Forward slash Juicebox.
Podcast this episode of The Juicebox Podcast is sponsored by the Dexcom G six continuous glucose monitor, learn more, and find out if you're eligible for a free 10 day trial@dexcom.com forward slash Juicebox Podcast is also sponsored by Omni pod makers of the Omni pod Dash. And they have a free trial that you also may be eligible for theirs is 30 days long. On the pod.com forward slash juice box, find out if you're eligible for that free 30 day trial of the Omni pod dash. Okay, before we get started, let me just tell you that for a very long time, I've wondered and wondered about how to help people with type two diabetes have witnessed people with type one benefit from community. And from this podcast, from the feeling that they're not alone from others being willing to share what works for them. And it's, it's been life changing for people with type one. I've also seen plenty of entities try to start type two communities. And they never take off. I mean, I'm sure they're lovely for the people that find them. But they never get wide enough to to throw a net that can catch people and bring them in. After I've seen what this podcast has accomplished for type ones and and how far it's traveled. And how willing the listeners have been to share it with doctors and friends and strangers online, anyone who they think it may help. I've come to believe that this is a special group of people. And I think we all know someone who has type two diabetes. So I'm going to start sharing stories of people living with type two diabetes, and I'm going to count on you the listener to try the episode, even though it might not have anything to do with you. Maybe your kid or you have type one and I don't know, I'm just hoping you might you might dive in and and listen and hear these people's stories and, and share them with others. Because I think this is how we build a valuable type to community. And I'm gonna give it a try. So if you're up for helping, check out Leann story today and share it with someone who you know, that has type two diabetes. I'm kicking off this series, which by the way, I'm calling type two stories with Leanne, because she was just delightful, and I had such a great time talking to her. And she shared what her life with type two is like. And there'll be another episode coming up soon with John. And hopefully, if you have type two diabetes, you might hear this and think I'm going to add my voice to that as well. Please reach out if you have type two and you want to be on the show. I want to talk to you. I want to hear everybody's stories. What it's like to live with type two, the confusion, dieting, exercise, what it's like to talk to doctors, friends, family members, the whole thing. I want to weave a generous and A rich tapestry so that others can understand what type two is like and so that people living with type two may find this is my hope that they may find the commonality and the answers that they need to live better with type two.
Leanne 5:19
I'm Leanne. I'm a type two diabetic and when type two cents? Well, I the first time was gestational diabetes in 2006. And then I was diagnosed in 2009. With diabetes.
Scott Benner 5:35
Okay, so you've had type two for like, a dozen years. Yeah. Oh, yeah. All right. So you're definitely a type two?
Leanne 5:43
Yep, definitely. I've been tested. My daughter's type one. So we did all the testing and everything's negative.
Scott Benner 5:52
Okay. When When was your daughter diagnosed with type one?
Leanne 5:56
Um, August of last year?
Scott Benner 5:59
Oh, recently. Yeah. At what age?
Leanne 6:03
1212.
Scott Benner 6:04
Okay. Are you? Are you drowning a puppy? What's going on back there? I just heard
Leanne 6:11
I'm drowning in a puppy.
Scott Benner 6:14
I just know it. Do you have a puppy?
Leanne 6:19
Yeah. My son. My grandson has a little pug for his emotional support animal.
Scott Benner 6:29
Oh, no kidding. That's a That's a? I mean, as long as he doesn't mess up the podcast, I don't care one way or the other. Okay, so how old are you now? Alien? I am 52. Tomorrow. 52. You've had Oh, happy birthday. Thank you. Congratulations. So a dozen years since you're 40 type two, we'll probably get to your daughter at some point. But I want to really start with you. What, how? I guess what, how, what do they say to you when you have diabetes when you're 40? Like what kind of like direction do you get from a doctor is my question.
Leanne 7:10
Well, they, when I was pregnant, they put me on insulin. I went straight to insulin. And then after my daughter was born, they tried the insulin with metformin, and glipizide. All kinds of all kinds of I mean, I've been through the whole rigmarole of pills. I was on a sliding scale of insulin. So I took 10 units with every meal and did just wasn't working. But was it they kept saying they kept saying that I was non compliant.
Scott Benner 7:52
What does that mean? You ate more food than they gave you insulin for or less food and you gave insulin for
Leanne 7:58
it? I guess. I don't know. I did exactly what they said they would say. Now we said to eat, you know, between 60 and 80 carbs per meal. Well, I thought that was kind of a lot. So I wasn't even eating that. I went very, very low carb. I actually did the 500 calorie diet for a while. Wow. I lost 100 pounds. And still insulin resistant, you know. So I, I went through their rollercoaster ride for for 12 years.
Scott Benner 8:39
We ended they call you noncompliant for eating fewer carbs than they asked you to eat.
Leanne 8:44
They just because my blood sugars would stay around 500
Scott Benner 8:49
Oh, okay, so you were eating? Oh, no kidding. So you needed more insulin? Nah,
Leanne 8:56
I needed a lot more.
Scott Benner 8:59
And they were like, just take a little bit of this with your dinner. And then when your blood sugars came back, they just figured you weren't taking the insulin at all. But you are. Right. I understand. Okay,
Leanne 9:07
or the or the pills. So, but I was I was doing everything they told me to do. And they were it was kinda like, they were thinking that I couldn't be doing it because my blood sugar's were still so high.
Scott Benner 9:22
I don't understand why somebody wouldn't believe you if you told them what you were doing.
Leanne 9:27
Oh, I don't know. I guess. They figure you know, type Q if you're really doing these things, and you shouldn't have any problem.
Scott Benner 9:35
Yeah. No, they weren't right about that. Were you just seeing a regular general practitioner? Yes. Okay. Do you still see the same doctor?
Leanne 9:46
No, no, I was diagnosed when I was living in Alaska. I was I was seeing my my, the doctor that my mother saw for her diabetes.
Scott Benner 10:00
Okay. You're Dr. Methuselah Is that who you were saying
Leanne 10:10
you know, we back then we did the best we could we had we had the the intermediate I call it insulin, you know, the cloudy stuff, you got a roll in your hands. We did the best we could with what we had, you know, and there wasn't a whole lot of and there's still not a whole lot of education around it. So
Scott Benner 10:32
no, I know it's one of the reasons I want to talk to some more people with type to to shine a light on the fact that I don't think you guys are given very good information at all, but most of the time, and you said you lost 100 pounds with your with your shifting. And did that change your insulin needs?
Leanne 10:51
No. I'm still a one to four carb ratio.
Scott Benner 10:57
Let us be fair, did you go from 1000 pounds to 900 pounds?
Leanne 11:02
No, no, no, no, no, I, I am about 165. Now Wow. I'm a firefighter EMT.
Scott Benner 11:12
Okay.
Leanne 11:16
homecare aide and I CNA.
Scott Benner 11:18
You're pretty active during the day, then?
Leanne 11:21
I'm very active area. Okay. And I have a little farm.
Scott Benner 11:25
Alright, okay. Let's see, people share your details with me. We're never gonna get the other stuff out. But what do you mean, you have a little farm?
Leanne 11:31
Um, well, we have we have goats and chickens and horses and dogs and cats and lizards. And so I'm constantly repairing fences or feeding animals and mucking stalls, you know? So it's not like I'm sitting on my button lazy all day.
Scott Benner 11:50
I know, you're busy and you're moving. You just, you're just resistant to insulin. Very, and your mother had type two as well? Yes. Okay. My mother, my sister, my grandmother. Was there anything to really? Your mother, your sister, your grandma? So everybody? Is there anything that they did that was successful that you were able to mimic? Or do you guys not even talk about it? Like, how was it discussed?
Leanne 12:16
Um, well, my my mother passed away in 2007. From diabetes from complication of diabetes. Okay,
Scott Benner 12:28
what was the complication?
Leanne 12:30
My sister has kidney disease.
Scott Benner 12:33
What was your mother's complication?
Leanne 12:36
Well, she went blind. She she ended up with kidney cancer. And the treatment for kidney cancer just pretty much wiped her out.
Scott Benner 12:47
Gotcha. And yeah, and now your sister has kidney disease? Uh huh. And this is from her diabetes as well. Yes. Okay. Are they as apt? Were they as active as you are?
Leanne 13:00
No. I don't think anybody in my family so in fact,
Scott Benner 13:08
there's no way to be as active as you are.
Leanne 13:14
Like the Energizer Bunny, man,
Scott Benner 13:16
how would you describe living with type two? Like, I mean, from a perspective of, I think, first your information that you have like, like your set of marching orders, instructions. What is that like?
Leanne 13:33
Well, it's, there's pretty much I mean, all the information that we were given is wrong. If you ask me, it's all wrong. Okay. Oh, how so? Um, when my daughter was diagnosed, I threw out all my pills, I threw out everything. And I started from scratch. Because a light bulb, I was talking to the diabetes specialist, she said, Well, you know more about all this than than I do. And I was like, and that's when a light bulb went off. And it was like, Okay, we're gonna start over. So I I found my, my basil. And then I started working on my insulin carb ratio and my sensitivity factors and from there I went to the doctor and she's like, I don't know what you're doing. But you know, I mean, my a one C went from over 14 down to 5.6.
Scott Benner 14:39
No kidding how and how much time
Leanne 14:43
and five months and this was
Scott Benner 14:45
after you watched your daughter have type one. So what were you watching about the type one that made you think I could be doing this for myself?
Leanne 14:53
Um, well, it just made sense because you know, I know how insulin works and and I knew that I knew a lot more than I thought I knew. Because I was listening to what the doctors were saying, Here, take this here, do it like this, do it like that. But until they started talking carb to insulin ratio and Basal rates, that's when the light bulb went off, and I went, we're doing this all wrong. Because no matter what I do, I'm insulin. You know, I'm,
Scott Benner 15:27
it doesn't feel like you never, you never have enough insulin, and you definitely most assuredly need it. It's not just enough to take a pill. Right, right. So well, how did you learn for your daughter? Like, what was that process like she's diagnosed? And then who teaches you how to take care of her?
Leanne 15:46
Um, nobody. I mean, you're the podcast, I just started listening to the podcast. Oh,
Scott Benner 15:53
okay. I thought maybe you got some, like great information from a doctor and you started using it for yourself. But
Leanne 15:59
no, no, actually, when when I had the meeting with the diabetes educators, she said, Well, you already know everything you need to know, you just need to know how, you know, you need to apply it. Okay. And that's when it dawned on me that, you know, if I'm producing insulin, but I can't use it, what's the difference with her not producing insulin and needing it?
Scott Benner 16:25
Yeah, nothing really. I mean, the the end result is, is that you don't have insulin and you need it.
Leanne 16:30
Right. Right. So I mean, I might not go into ketoacidosis but or have lows without, you know, without insulin, but, you know, she's, she's 12. And she needs insulin. And I thought, I just thought, wow, you know, this makes sense that if I were to treat mine just like I treat hers, maybe we'll get somewhere
Scott Benner 16:57
right. So you were so now are you using a Basal insulin and a mealtime insulin?
Leanne 17:03
I am actually right now looping with the pump with Omni pod.
Scott Benner 17:07
Okay. All right. All right, Leanne. Okay. All right. So you just basically were like, Alright, everyone's got diabetes, minds going terribly. Then she gets it. Was there any fear there? Like when she got it? Where you're like, God, I can't even take care of my own. How am I going to take care of hers?
Leanne 17:28
No, because you know, that Mom Brain kicked in and said, All right, this, this has got to stop. gotcha. I gotcha. So you've got to live a long time now, you know, right, right. When I'm 55?
Scott Benner 17:40
Well, at the very least, yeah. We need you to stay around and stay healthy. When? So, alright, well, how do you find the podcast?
Leanne 17:51
I actually joined another Facebook group. And they somebody in there mentioned it. And so that's where I went.
Scott Benner 18:00
Okay. All right. So you went there. You learned about the show, went and checked out some episodes, watch some people online talking about diabetes, took it back applied it to your daughter, and you were having How long did it take you you just said but I forget the time frame. You got it? You got it down pretty quickly, right?
Leanne 18:19
Yeah. She was diagnosed August 12. And by It was November November 7, my agency was down to I think it was seven. And then in December, or January, actually, I had it down to 5.6. What about hers? Hers went from 12.9 to 6.1.
Scott Benner 18:56
No kidding. In a similar timeframe. Yeah, yeah. Huh. How would you describe your diet? Is it is it still low calorie? Or is it low carb? Is it pretty average?
Leanne 19:13
It's pretty average. I mean, we mostly eat like farm to table type because you know, we're 25 or so miles away from the nearest grocery store. Okay.
But you know, we have we have bread, we have cookies.
We have the normal things. I've never been one to buy a lot of chips and high fat high carb stuff anyway. So, I mean, you know, we go out to eat once a week and we definitely load on carbs then.
Scott Benner 19:48
Gotcha, but you're eating like, like, quite honestly the vegetables, meat. Things that you've raised yourself? Yes. Okay. 25 mile was from a grocery store. I am three miles from 25 grocery stores. I think just I just realized, as you were saying, and I was like, There's no end to how many grocery stores I could get to within a couple of miles. Are you just out in the you're just in a more rural area?
Leanne 20:16
Yes, yes. We live. Like I said, 25 miles out from a small town.
Scott Benner 20:25
So you're not 25 miles away from a big grocery store. You're 25 miles away from just having access to anything? Well, yeah, yeah. Yeah. That's interesting. How do you like living like that? I mean, you were in Alaska prior. Right. So you're used to being rural. But
Leanne 20:43
yeah, but in Alaska, I lived right there in the university. District. I see. I mean, I was right across the street from the hospital in the college.
Scott Benner 20:50
You were more. You were more near things in Alaska. And you are now where you are. Right? Do you enjoy it?
Leanne 20:58
Oh, yeah. Oh, yeah. I don't like to be bothered. I don't like people nowadays.
Scott Benner 21:03
You don't want to be bothered by people? I know what that feels like. Is that scary? Or like, how do you get your insulin?
Leanne 21:13
Um, I drive to town.
Scott Benner 21:16
Somebody's not mailing it to you? No,
Leanne 21:18
no, I drive to town. I don't trust the mail. Because we never know when we're gonna get it.
Scott Benner 21:25
Oh, it's it's not? Oh, I see. Okay. All right. C drive. And then are you in your daughter using the same kind of insulin are using different kinds?
Leanne 21:34
No, we use the same kind I made sure. I tried to keep us on the same dechaine Just so that we don't run out. And it's interchangeable.
Scott Benner 21:41
Yeah, that's a good idea, actually.
Leanne 21:45
So whatever she goes to, I'm gonna go to
Scott Benner 21:48
how were you able to get a doctor to prescribe an insulin pump for you?
Leanne 21:53
Actually, I just called up Omnipod. And I called my doctor and I said, you need to approve this, because this is what I'm doing. And she said, Okay. Once Once I started bringing my a one C down. She was like, whatever you want, and whatever works.
Scott Benner 22:08
Oh, okay. So you showed that you knew what you were doing? And then she kind of got away?
Leanne 22:14
Yep, yep. She's like, she's asking me what, what I need, what I what I want what I need, because she, she doesn't know a whole lot about him.
Scott Benner 22:26
That's something I love that you just, you know, I've I've said before, under my breath, maybe out loud a couple of times, just call the company get a process started. And then just put the pressure on your doctor to just sign off on it. You know, for the people who are like, Oh, my doctor says I have to wait a year, whatever they say.
Leanne 22:44
I wasn't I wasn't about to take any of that. You know, they say that you have to have your blood sugar's under control, before you can do anything. But the way they're, they're giving you the the instructions, you're never going to have it under control like that. You know, I can't take 10 units for five carbs or 10 units for 60 carbs, that makes no sense.
Scott Benner 23:13
So they give you this this goal to get to, and no instructions or tools on how to get to it and then tell you if you get to the goal on your own, then we'll give you the thing you really need. Right? Yeah, and there's no way that's gonna happen. Right? It is an interesting situation. I do wonder what the thought, well, you know, sometimes you wonder what people are thinking you find out they're not thinking anything? Yeah. I was just wondering, like, what the thought process was there for how do you how do you tell somebody, you know, I need you to jump over this wall. And then hide the ladder from them. Tell them the only way, you know, the only way they're allowed to breathe or eat is if they get over the wall? It doesn't it doesn't really make any sense at all. Actually, no, the entire thing doesn't make sense. Because I'm not saying like, I mean, I hear your story. And I'm excited for you that you found something that works. But I'm not even here saying like type two should just always be on insulin or always should be in an insulin pump. I'm saying that there's something that's going to work for everybody could be for some people, it could just be diet and exercise. For some people. It could be, you know, an oral medication and diet and exercise or, you know, maybe some people like you just need the insulin doesn't matter if you lose. I mean, my goodness, you know, almost half your body weight. And right still didn't help you. So, I mean,
Leanne 24:31
they say on the average, if if you're pre diabetic or just diagnosed with diabetes, if you lose on average, 30 pounds, you you'll, you can, quote unquote, reverse it. Well, that's not really true
Scott Benner 24:47
for you. I mean,
Leanne 24:52
even for a lot of people because they're still going to be insulin resistant when they eat carbs. Yeah, so you can eat a low carb diet. I mean, if you don't eat carbs, you won't need insulin.
Scott Benner 25:05
Do you need your basil? From the pump? Whether you're eating or not?
Leanne 25:10
I? Yeah, my basil is running 24/7 How much? Why get like 84 units of basil a day right now?
Scott Benner 25:18
Wow, no kidding. Are you using? Like you 500? Or something like that? Or are you? Nope, no,
Leanne 25:24
I'm using the just the 100 I tried to get the 200 but my insurance is really having a cow. So instead of doing that, I just told my doctor I said, well then just prescribe the Omnipod change every 24 hours.
Scott Benner 25:44
Okay, and you do you put a new pot on every day?
Leanne 25:47
I don't. I try to to cuz I only usually one mill a day. I run on coffee. And, and so I'm averaging about 125 units a day.
Scott Benner 26:04
Okay. All right. So you're making it 1820 hours. Something like that change? Yeah,
Leanne 26:09
I'm making it usually about 36 hours. Thanks.
Scott Benner 26:13
I'm sorry. Yeah, I don't know. I just did the math backwards there. Okay, well, yeah, you know, it's funny for some people were like, Oh, I can't believe I have to change my pump. You know, it won't. It won't last the whole time. Like it, it lasts as long as it lasts. You still don't have to give injections during all that time, right? And you still get the benefit of the pump running your basil. And it's a right. It's you don't even see that as a problem. Right? You just see that as what needs to be.
Leanne 26:38
Right. You know, and I like, you know, because I'm looping you know, it'll self adjust. So if my insulin needs go down, my pumps gonna fix it.
Scott Benner 26:48
No kidding. Are you on the auto Bolus branch are on the way on the pizza branch that does the by basil.
Leanne 26:58
I have the auto Bolus branch too. Okay, or whatever that is. That's great. I have the option. I was doing it for a while.
Scott Benner 27:07
Did you not need it? Do you not need the auto ball thing?
Leanne 27:11
I'm not usually I work. It works pretty good. Like right now I'm running it, you know, 89 I run? I don't get over 120 anymore ever. Unless I'm really stressed or something
Scott Benner 27:26
really stressful. You mean? Like, like a sheep ran away or something like that?
Leanne 27:32
Like, like, a teenager. So you got kids together? And I'm biting my tongue really?
Scott Benner 27:40
Well, yeah. Listen, if you're gonna tell me you live on a small farm, and you expect me to make fun of Canadians when they come on, then I gotta get what I mean, I gotta equal time. How do you feel versus how you felt prior has had any impact on your just your day to day life and energy in
Leanne 28:01
tons? I mean, before if I if I was to play in my house, I might have to lay down and sleep for two days. You know, I my whole body ache all the time. And once I, once I got the insulin and mean that my body needed, man, I have energy that just won't quit.
Scott Benner 28:24
Good for you. No, I cursed. I didn't mean to charge. I'm so I'm so thrilled because, you know, I don't know if it comes to surprise to you or not. But it's incredibly difficult for me to get type twos to come on the podcast. Like it is not easy. I try and I try and there's just not many of them that are willing to do it. And I think it's because, well, why do you think it is?
Leanne 28:50
I think it's because there's such a stigma. And they're, they're so used to everybody judging.
Scott Benner 28:55
Oh, gotcha. Okay. I always thought it was because they don't know what to talk about. Because I don't think anybody understands their time, too. Well, maybe, you know,
Leanne 29:04
the question is, do they have good control? I mean, or are they kind of floundering out there? You know, I mean, I see. Well, I was just responding to a post on your, your page. And it's so many people just don't know what to do. I know, because they've been given bad information,
Scott Benner 29:27
or no information, or none. Yeah, I just interviewed a guy the other day. I don't know when it'll come out. But it was interviewed or interviewed. He was diagnosed as a kid like in his teens and just no one to help them. You know, and he lived for so many years, not even understanding the simplest things about his diabetes and had a real horrible impact on his life and
Leanne 29:48
right, I was fortunate that even with my blood sugar's up between three and 500. I don't have any long term effects. My kidneys are good. I don't have any neuropathy. I was starting to get around 50. And then it went away when my insulin got adjusted,
Scott Benner 30:06
we ended your daughter getting type one diabetes kind of save your life.
Leanne 30:11
I think so. Yeah, that's I tell her all the time. And she's like, well, we're buddies now. And I said, in more ways than ever to are all the time. You know, you you if it hadn't been for you being diagnosed that I don't think I would have, everything would have clicked,
Scott Benner 30:27
right. Yeah, don't give her too much power, though. It'll go to her head, but I hear what you're saying. Like, that's gonna be like, I did save your life. I'm like cleaning my room. Well, that's it's so the really super interesting thing about talking to you is, is it there's no discernible difference between your story and a type one story.
Leanne 30:50
Right, other than I know, you know, like I said, we I won't go into keto acidosis. But
Scott Benner 30:57
sure, yeah, your body's gonna hold off a little, like, hold it down to some degree. Right. And if you stop eating your blood sugar comes back down ish. Eventually, I imagine
Leanne 31:07
is I so what I had to do, I mean, even on my basil, you know, I was on she had me on like, 30 units a basil. I was still running over 300. So I started titrating, my basil up until my blood sugars in the morning, were under 150. Okay, and I, I left it there for a little bit. And then I went down under 100. And I left it there for a little bit that I went down to about Ed.
Scott Benner 31:41
Lee, and you and I Jive right. You get me, don't you? Yeah, I could tell you. What's your total Basal for a day? Because I have a guess at 484. Wow, that is, but it must have taken some real nerve to get to that number. Hmm. Like you must say, You're a little ballsy doing that is what I'm saying? Like that's, well, it's well, no,
Leanne 32:06
no, I wasn't. I wasn't dropping low. So let's go another new unit.
Scott Benner 32:12
Go another unit. Do another five. Do it again, boys. So you're like three and a half an hour? Ish around there?
Leanne 32:21
Yep. Sometimes even more. I mean, it just kind of depends. You know how loop works?
Scott Benner 32:27
Right, right. Yeah, yeah. Sometimes you'll see a checkup right? Does it ever go away? Like you ever see it take your basil away
Leanne 32:35
for maybe 10 or 15 minutes, but not for very long, just looking
Scott Benner 32:39
for balance? It doesn't care. Right? You never look like you're getting low to the algorithm.
Leanne 32:44
See, like right now? I'm running 90 And my basil is 5.1.
Scott Benner 32:51
Thank you. And your basil is 5.1. Gotcha. So it's seeing you try to go up and it's being aggressive with your basil holding you down? Yep. And do you see any difference between how you manage yourself and how you manage your daughter?
If you're using insulin, you might want an insulin pump. If you might want an insulin pump, you definitely might want the Omni pod. How do you know? Well, you could try it with the free 30 day trial of the Omni pod dash. Find out right now if you're eligible at Omni pod.com, forward slash juicebox. Now that I've been sure to tell you about the 30 day trial, I want to tell you some more things about the Omni pod. Like it's tubeless. You can swim with it, shower with it, jump in a lake with it, jump up and down with it. It's not connected to any tubing or any devices. Understand I'm saying every other insulin pump that you can buy has a tube that comes off it seems like it's inserted into your body in the infusion set. These are the other ones I'm talking about. And then tubing, tubing could be a foot long, two feet long, three feet long lot of tubing, you're hiding in your clothes, etc. And then it's connected to the insulin pump. And then that's where the insulin goes. You pick that up to push buttons on and and stuff like that you clip that on your belt or stick it in your bra. You see what could be happening here on the pod, not like that at all. On the pod is a little pod. It has everything you need inside of it. When you need to talk to it. You have a handheld controller that is not attached to it. It works through the magic, whatever, you know, technology like you can touch something like a remote control and then on the other like your TV moves. Same thing with the Omni pod. Do you pick up the PDM the personal diabetes manager you tell it like I'm having 43 carbs PDM push button, and it's not magic. It's technology but it doesn't make a big sound but I think you're following along with what I'm saying where Getting a little far away from the point now, the only pod is not attached to anything, right? It's just the pod that you wear, nothing else is attached to you. And you don't have to take it off to swim, or do any of the other things that you might have to remove these two pumps for that or stand like adults, you know what I'm talking about, right? Yep, and other things like that, for instance, soccer, head over now to Omni pod.com forward slash use box and see if you're eligible for that free 30 day trial of the Omni pod Dash. And while you're in the mood to be on the internet, and get stuff for free, how about a free 10 day trial of the Dexcom G six continuous glucose monitor, because you may be eligible for that as well, you know, where you would find out about that at my link dexcom.com forward slash juice box by the way, the links to the sponsors and all the sponsors are at juicebox podcast.com. And right there in the podcast player. There's like little shownotes right there in the podcast player that you're listening in. If you can't remember dexcom.com forward slash juice box, which I think you probably could remember, but I digress. The Dexcom G six, it does some good stuff baby. It shows you your blood sugar in the real time on your phone. I am picking up my phone now and swiping up. And I am going to tell you that are this blood sugar is 132. She has a little bit of a rise from a late night snack. It seems steady like it's not going to come down. And in a minute, I'm going to talk to her about maybe making another Bolus, not only can I see Arden's blood sugar, but up to nine other people could at our house, it's just my wife and I. But you might want your aunt to also look or your boyfriend, your girlfriend, your school nurses, somebody like that anyway, you can choose up to 10 people to see your diabetes data if you want them to see it. And if you don't want them to say it, you don't have to show it to anybody. Dexcom also has alarms that you set to tell you when you are rising or falling, or hitting a threshold that you want to know about for us. We get an alarm when my daughter gets to 70 and 120. You could make your settings, whatever you like. Maybe you heard that and think oh, that's a good safety precaution. You'd be right. Or maybe you heard that and thought I probably could do better with my insulin. If I knew when I was rising and falling. I think you'd be right about that as well. There are a ton of ways to use the Dexcom G six in your favor. And you're only going to find out about them when you go to dexcom.com forward slash juice box and start to look into it. Honestly, the Dexcom and the Omni pod are great devices for anyone using insulin. I hope you check them out using my links for full safety risk information and free trial terms and conditions for the Omni pod. You can visit omnipod.com forward slash juicebox. Alright, now let's get back to Leanne. No, it doesn't seem different to you know,
Leanne 37:58
I just jacked her basil up to where she's
Scott Benner 38:01
getting to that age ranges, periods and things like that are probably here. She's
Leanne 38:05
getting ready. And I can tell because her blood sugars are creeping up for no reason. So I was like, oh,
Scott Benner 38:12
no, you're not gonna have any trouble with that. That'll look like a joke to you. You'll be like, ah, let's turn this up a little bit here. We'll be all set. Just you know her Basil is not going to go up to three, right? I mean, probably.
Leanne 38:26
Well, um, let me see. I got her follow right here. So she she's right now 1.5 But just a little bit ago she was at like, 2.8
Scott Benner 38:38
No kidding. So she's she's running the algorithm as well. Yep. Oh, yeah. Guys are kicking ass was excellent.
Leanne 38:50
I was the guinea pig. I started I got the the the Omnipod I had, I hadn't vote for her and for me within six weeks. Because I wasn't taking no for an answer. Right. And her endocrinologist is like, whatever you want, because I think you know what you're doing. And I said, cuz she was in honeymoon and they wouldn't. They don't usually like people to have the pumps in honeymoon. And I said, okay, so she's got a one to 250 carb ratio. Give me the dang pump so that I can give her micro doses and keep her blood sugar's lower. Yeah. And so they did. And so I tried it on me first I started the November 2 pumping. And I started her on the 10th
Scott Benner 39:44
we can you figure this all out in a very short amount of time. Seriously, it's wonderful. It really is helpful to be able to practice on yourself you think?
Leanne 39:54
Oh, yeah, yeah. Oh, yeah.
Scott Benner 39:56
Take away yeah.
Leanne 39:56
I played around with it. I have a couple of pretty good lows before I. Okay, we know what that does
Scott Benner 40:08
what's that to ever see Apollo 13 when he puts this piece of tape over top of a switch and just says no on it have you get vented the capsule of its air or something like that they were getting a little squirrely at the end. And and I don't know if any of that's historically accurate. But Lovell looks at the guy and he's like, what's that for? And he's like, you know, just in case. You know what switches not to throw anymore? I'm, I'm listened to we don't know each other. And you're an adult. I know, you might be older than me. And I have no idea, I guess. But I'm incredibly proud of you. This is was really wonderful. I mean, I'm, I'm loving hearing this.
Leanne 40:49
Yeah. So I you know, I like with my daughter. I don't mind, you know, and I see a lot of people Oh, my goodness, they're under 100. At night, what do I do? I don't I let my my daughter coast at 7580. As long as she's steady. She's good.
Scott Benner 41:07
Yarden had a great overnight last night. It was super steady. And she was the she was kicking us all night long. Actually, just, I mean, she tried to get a little low around 330 Maybe. But the algorithm got in the way of that. And that was coming down from a correction. To be honest, she had a correction at like midnight. And it took about three and a half hours before it was a little too much. And then a DA it was able to catch it. So I mean, I agree with you, I think steady is steady and steady at any number is, you know, is good. If you're not going to drop then I'd like to be as close to normal as possible. Right? You know? Wow, I don't even think there's much to say to you. You just you're like you just took the podcast. Like I'll do all this. Don't worry. I did it. Now we're done. Let's get back to fixing the fence.
Leanne 42:08
Well, let's rock and roll. If you're gonna do something you might as well go balls in right?
Scott Benner 42:11
Why not? Did you try telling you to try telling your sister about this?
Leanne 42:16
I did. And actually she she told me she was in. I think it was stage two or three kidney disease and I said okay, she said, well, good doctor said she doesn't think it's reversible. I said, All right. This is what you're gonna do. You're gonna you're gonna stop screwing around. Oh, watch my mouth. You're gonna you're gonna stop screwing around
Scott Benner 42:39
where you keep going. Before you keep going. I want to point out that scurrying around seemed like a watch your mouth but balls deep. You were okay with.
Leanne 42:48
Wow, I wasn't gonna say I wasn't gonna say screw it.
Scott Benner 42:53
I love your line. Your line is very jagged. I'm enjoying it. I'm sorry. You said to your sister.
Leanne 43:00
So I I told her she needed to get back into her diabetes specialist and insist that they help her find a insulin to carb ratio. And a good Basal because she was on five different insolence.
Scott Benner 43:19
Really? Like, yeah, trying different stuff she was she was using multiple kinds of insulin at the same time.
Leanne 43:27
She was using like, the weekly one. The ones daily one, then her long acting. And then it was just it was crazy.
Scott Benner 43:38
Sounds like your doctor did not know what to do at all. Just kept throwing things at her. Okay?
Leanne 43:43
She's got her blood sugar's down to right around 130. That's great now, but you know, getting her to listen to a podcast or listen to me very well was kind of hard.
Scott Benner 43:58
Did you tell her I was lovely, and that she would enjoy it?
Leanne 44:03
He's just I don't know, you know, when she's when she's ready to take control? I guess she will. But you know, I'm not here to push anything on anybody? And
Scott Benner 44:11
of course not. No, no, I'm not saying you should. I'm also, you know, it's just interesting. I'm not saying you're gonna reverse her kidney disease. But I mean, even does slow things down or worse, you know, stop progression would be a big deal.
Leanne 44:25
Yeah, well, you know, my dad had my stepdad, he had diabetes, and he was on dialysis. And I took care of him till he passed away too. It's it's hard to watch somebody go down that path.
Scott Benner 44:41
Yeah, that sounds like you might stop the stop the circle in your family. I mean, at least in your in your immediate family. I'm really hoping Yeah, we were all not alive just to grow up and help somebody else die and then to be put in that situation for the next person. You know, like it would be nice stiff and not unreasonable for people to live healthy lives and, and finish up, you know, somewhat reasonably. You know what I mean? Like, like, like, like you're meant to be like in a car accident or something like that. I'm just kidding. Like, you know, like, you know, old on you're,
Leanne 45:19
I'm envisioning, you know,
Scott Benner 45:23
I've just, this is my, this is my luck, I get myself together one way, and then a rock would just fall on my head. But, but No, but seriously, like, we you know, people deserve a shot at a longer healthy life, your you know, your, your end, yours shouldn't be, you know, helping someone else to pass gracefully, knowing that you're about to ask another person to do that for you. And, you know, it's just terrible.
Leanne 45:49
Yeah, well, you know, those in my family that have had diabetes, with the exception of my uncle, I guess I just found out my uncle had type one. All I knew as a kid is he had this packet, this cool little case that he kept all his insulin and stuff in. But I just recently found out it was type one, because I was like, Whoa, you know, no kidding. And then he lived to be like, 84, but my, my grandmother, my mother, nun, or, you know, my mother passed away at 66. And my grandmother was 72. But she had just gotten diabetes. Not too long. He was like, in her 60s,
Scott Benner 46:38
right. So yeah, that's too young. I mean, maybe back then, maybe a couple of generations ago, certainly my grandmother died at 73. It's funny, though, like, I don't know about for you. But like, I look at a picture of myself at my age now. And a picture of Mike my father at 50. And he looks 75 to me when he was 50. And my grandmother passed at 72 or 73. And I mean, in my, in my mind's eye, she was much older. Right? So I know, there's a little bit of benefit that goes on, she also worked much harder than I am ever going to work. You know, she grew up on a farm. And, and, you know, she had a different life. My father worked in a in a factory. I didn't have to do that for very long. I got out of there in my early 20s. So but still, like I get the idea. It's just, I don't know, like, it just, it just seems it seems reasonable, that you should have been able to take these experiences that your extended family had learned something from it and improve, right? Like, that doesn't sound crazy to do and you did it. Like, it's wonderful. I would hope. For me, it sounds like that to me, do you? Do you feel like it's going that way?
Leanne 47:49
I do. Because, you know, like I said, I had a pretty good understanding of how insulin worked. But the way they were telling me to use it, just never, it never worked. It never worked for
Scott Benner 48:05
me because you weren't using enough. Right, right. Because
Leanne 48:09
like I said, I have a one to four carb ratio. And sometimes it's one to two.
Scott Benner 48:17
Really, and but you don't know you won't know when or it just kind of pops up and happens to you.
Leanne 48:23
Yeah. So And in that instance, you know, I watch it on the loop and I say, Oh, well, we're gonna crush that before it gets out of hand.
Scott Benner 48:33
Are you? Are you running? Are you running your your your diabetes? Like a video game? Pretty much I am. Yeah. Score. I have talked to a couple of people recently who seem to put it oh, it seemed to put it in that situation to give me a second, please. I think Ardens Oh, wait, I got I got a hold of her. She's in the shower. Maybe her blood sugar just dipped down. And I was I was texting her for last couple of minutes. She wasn't answering me but she just answered me now. So we're good.
Leanne 49:05
That's funny. My daughter and I both when we when we take a hot shower, we go up.
Scott Benner 49:11
Yeah, I hear it from everybody. You know, you've heard me talk to Jenny about it. And Jenny's like showers don't affect people's blood sugar. Like she's just like it's I think it's different for different people. Like you just
Leanne 49:21
Yeah, yeah. Ours goes up and then our foot on the floor is we both dropped.
Scott Benner 49:26
No kidding. You wake up in the morning and get lower.
Leanne 49:29
Yep. I'll wake up you know. In the 70s and by the time I get my feet down on the floor, I'm my alarms are going
Scott Benner 49:41
what happens to bedtime? We lay down in bed do you get higher or lower when you lay down? Nothing. Nothing happens at bedtime. Okay,
Leanne 49:48
I just stay pretty steady all night.
Scott Benner 49:51
Gotcha. That's interesting with a whole
Leanne 49:54
my daughter. My daughter sometimes will go a little higher but you know a lot of hers are Right now or I'm pretty sure home hormones. I'm dreading the day but you know,
Scott Benner 50:06
oh, you know, stop it. So tell me a little bit about her being diagnosed. What did you notice first?
Leanne 50:16
I noticed the frequent urination. And I called up her pediatrician and I said I need to have her tested for diabetes. And she said, I'll bring her in. We'll just she's probably got a UTI. I said, I'm telling you it's not a UTI. There's too much urine. And too often. So we went in, they tested her for a UTI, nothing but they found ketones. And then they did a blood sugar and an A one C. And I knew where I did. So on the way home, I stopped changing my plans for dinner because we were going to have more carbs for dinner and it a low carb dinner because she her blood sugars are like 279 At that point, but her a once he was 12.9. So I was like, and she had ketones. So I was like, Ah, so I fed her low carb that night. And they call me back in the next morning and said get her to the hospital.
Scott Benner 51:16
Hold on one second formula, and this never happens. What's up? Yeah, go ahead. Well, you need to go take care of that. Right now. Hold on one second. Leanne. Can you give them five minutes and I'll be right back? Yep, I'm gonna stop the recording. So feel free to poke your nose. Nobody will now Okay, again. I'm sorry. I'm back. So, this is so embarrassing. I'm just going to tell you. Things don't usually go like this around here. But Arden you know, her blood sugar was getting a little low. So at first I was just texting or anything like, hey, you know, you need a juice. And she taps on the door, and she's wrapped in a towel. her girlfriends and her are going to dinner tonight. And she's trying to get ready. And she's drinking a juice. He looks fine. I'm like, what's wrong? I'm recording. I'm pointing to my ears as if she can't see the giant headphones on me. And she goes, where's mom? I'm like, I don't know. I made your mouth 25 years ago, like she just stopped telling me where she was gone quite some time ago. I like sound like and so I'm like what's so I finally said the she clearly whatever was bothering her. She wasn't gonna walk away. And I, I uncover my ear. And I'm like, what's happening? And she's like, the dog had an accident downstairs. Which by the way, never happens. Like I mean, just like never happens. And I'm like, we'll go take care of it. She goes, and she's looking at me holding a juice box wrapped in a towel. She's like, I can't and I'm like, All right, I'll go do it. So like I'm downstairs like an all I can think of is like Leanne's talking about mucking the stalls. I'm like mucking my dining room. You know what I mean? Like, oh my God. Oh, I love it. Like if it was hard, it was hard. I would have been back three minutes sooner, but I was like, I've got to sculpt my hands with hot water and soap before I go back upstairs. Anyway, I apologize. That does not normally happen.
Leanne 53:22
It's quite alright. Usually walk. We understand those kinds of emergency. I was
Scott Benner 53:26
gonna say like, perfect day for this because cuz you're gonna just be like, that's fine. I don't mind. It's everybody else would be like, what happened? Like? And anyway, and I don't know what dog it was. So there's two dogs. So now I'm not sure which one's not feeling well, but it's one of them. Oh, no.
Leanne 53:43
Oh, I'm sure you'll find out soon. No, oh,
Scott Benner 53:47
sure. To joy, children, dogs. They're all great decisions I've made as an adult. Anyway, so I was trying to cheeses. So let me try to get back on track here. Your your daughter's diagnosis is like kind of like the the point where I'm interested. So she's when she's diagnosed. You're not getting much information for her either, right? Like it's just sort of like your MDI at that point. Does anybody have a CGM? Has anybody ever mentioned a CGM to you or anything?
Leanne 54:20
No. Well, she was she was prescribed the CGM before we left hospital. When I talked to the diabetes specialist, actually, she was asking me questions and I'm answering her everything, you know, that I've known. And she says, Are you looking for a job? I said, Well, I don't think I have the qualifications to be an diabetes education specialists. And but she she did say that they were opening up a new clinic closer to where I was, and and I should really consider it
Scott Benner 54:58
rolling.
Leanne 55:02
But yeah, but yeah, my diabetes is totally unmanaged.
Scott Benner 55:06
You're standing there right now, you know, you know, basically, boy, this is an insight, isn't it? You basically know about 10 words, because you have type two diabetes, and she's like, you'd be a great person to help people around here. Right? Well, that's a, that's a sign.
Leanne 55:22
Well, I was explaining when, when the doctor walked in, I was explaining a onesies to my daughter. Because you know, I know that. And I was I was even drawn it on the board, write it on the board. And I said, if you have an A one C of 12.9, this means your blood sugar's are Everdeen. You know? And if you want to get under a, I said, Well, what I said was, you want to be around a six, then you need to get your blood sugar's here, and he says, actually, we want him at seven. And I looked at him like, Have you lost your cotton picking mind?
Scott Benner 55:55
Well, yeah, it's, it's interesting. So you knew that much. But what was your agency at that time? Like 11 something right?
Leanne 56:02
Um, no, mine was actually like, well, I don't know it at right then. I'm not sure what it was. But I had fluctuated. The lowest I've ever gotten in, in probably 10 years was a seven. Okay. And I knew how I felt at seven. I still felt like crap,
Scott Benner 56:25
right? How did you get to the seven? Was that just good luck? Was that or is that a lot of restrictive eating?
Leanne 56:30
That was a lot of restricted eating a lot. I mean, I did the HCG Diet For goodness sake, what is that? Ah, what are you inject yourself with pregnancy hormones and only 500 calories a day with no carbs?
Scott Benner 56:45
We and who the hell are you? Wait a second.
Leanne 56:50
I was trying. I was desperate. How did you? You know, low carb and restrictive diet? I lost 100 pounds.
Scott Benner 56:59
But how did you get a hold of? Who are you by this? Oh, you don't even want to know. Really? So okay, but let's be serious, because I see you're out there. Like on some sort of a black market, trying to say trying to save your own life somehow. Right? Yeah. Okay.
Leanne 57:19
Well, I guess you know, my husband and I, we've got six kids. And he passed away when my youngest when my daughter that has type one was five months old.
Scott Benner 57:29
I was gonna say he passed away when he realized he was gonna have to pay for six kids. That's what I would have gotten.
Leanne 57:35
Probably. Okay. And then and then I adopted two kids and I have custody of another one. Plus, I have custody of my two grandsons. So
Scott Benner 57:46
we hold on 678. Is that 1011 11? Did I lose count while you're talking?
Leanne 57:56
So I got six. Adopted to see. I have custody of my my cousin's child. oh nine and then the two grandchildren. And then my two grandchildren.
Scott Benner 58:08
No kidding. What state do you live in? Can I ask this question? Washington? Washington State? Yep.
Leanne 58:16
I'm in Washington now. Okay. All right.
Scott Benner 58:19
You in the 11 kids, the 17 dogs, the lizard and all the other stuff?
Leanne 58:23
Right? Well, well, most of my kids are grown. So
Scott Benner 58:27
it was nice to them believe. Yeah. Do you? Do you have like a line on the wall where you're like, listen, when you're this old, you gotta get the hell out.
Leanne 58:37
I just I just said, my 18 year old is attending UAA. And then I have a I have a 15 year old. My 12 year old my 11 year old grand fun. my eight year old she's my daughter and my six year old grandson.
Scott Benner 59:08
Are there any other medical issues with all those kids?
Leanne 59:12
No, but I do have I'm gonna get I have the trail net that I'm gonna do for them because my my cousin's child, my aunt, her grandmother had type one diabetes, but she's not blood related to me. So
Scott Benner 59:27
I'm just gonna check to get those kids through me by any chance.
Leanne 59:32
Um, I did
Scott Benner 59:34
send them back and I get credit for when you send
Leanne 59:38
them back in. I get everything through you. I do the I do the surveys through you.
Scott Benner 59:42
I appreciate it. But I mean, you know, we're joking around. I'm having a lot of fun here but I basically like I was a huge help to you, right?
Leanne 59:50
Yes, yes. So any any way I can repay that? That's what I'm gonna do.
Scott Benner 59:55
Send me a guinea pig. I'm kidding. Do not send me a live animal.
Leanne 1:00:00
Well, you know, I got a funny story about guinea pigs but you probably don't want to hear.
Scott Benner 1:00:05
I don't know yet. I might be up for anything you say you don't know. Don't sell yourself short. You've said a lot here. I've been intrigued by every second of it so far, so don't don't sell yourself short, please. Okay, so you see, you're managing her. They they're saying a seven for her. And you're saying no, I know that needs to be lower. But then you go home, they do give you a Dexcom going out the door.
Leanne 1:00:36
Well, well, we went on vacation the day after I said, you know, they released us on on Sunday, but they wanted us to stay till Tuesday for the day the education and I said oh, no, no, we're going on vacation on Monday morning.
Scott Benner 1:00:52
She just with the education are not what you take with you. Needles. vials. Yep,
Leanne 1:00:58
I took I took pins and extra needles and a vial and here we go. Blood your blood testing kit.
Scott Benner 1:01:08
And you just went where do you go on vacation?
Leanne 1:01:11
We went to Silverwood amusement park
Scott Benner 1:01:14
to an amusement park. Sounds fun. In Idaho. There's an amusement park. See? There you go. Now you surprise me now you got my east coast. snobby? Miss out of me. I was like there's an amusement park in Idaho. Why would there be an amusement meanwhile? Why would there not be but Idaho so that's a bit of a trip. Did you drive that? Yep. Nice. All those kids. You put them into a horse trailer with all the kids. Where do they go in the car? Car Are they like rolled up in a carpet on the roof? Or how do you how do you handle that?
Leanne 1:01:48
I threatened a couple of them to be ornaments on the hood. But we we broke out on the side of the highway and I had to repair my alternator right there. We got it. We got to write in the on the back of a big old tow truck. It was a fun adventure.
Scott Benner 1:02:07
I bet you it was I'm not looking at pictures of silver woods. Or silver one. Look at that. It's an art. It's cool. There's trees around it and mountains. Yep, yeah, I we
Leanne 1:02:18
we ran into we went through the b&b and we rented a campsite with a tent and everything.
Scott Benner 1:02:26
That sounds like fun. And how did your daughter do? Being diagnosed? Was it stressful on her? Or did she kind of roll with it?
Leanne 1:02:36
As she just rolled with it? She said? She said Well, no, I'm kinda like you so well. Kinda. Yeah. She says, Well, you got me. I got this.
Scott Benner 1:02:47
Just like she trusted you. Oh, yeah. I bet you that felt like a lot of pressure. Because you were like, kid, I can't even take care of my own diabetes.
Leanne 1:02:57
Like, I was I was hell bent on on taking care of hers correctly, though. You know, I mean, I understand. Oh, and that's when I realized. I mean, I realized right away. I had been struggling with mine for so many years that I was about to give up. Just flat give up. Um, on management, and then I don't know, when they said she has type one. I went ding Yeah.
Scott Benner 1:03:27
I like given up quite Yeah. Well, listen, you should never give up. You're raising 11 Children, 53 animals. You're, you're a widow, and you can fix an alternator on the side of the road. I think I don't think you should ever give up to be perfectly honest. You might be the last person left when this whole thing goes to hell. They just, I mean, really, you You sound very capable. And I mean, if this doesn't prove it to you, I wouldn't know what would I would think just raising those kids would make you think you could do anything but
Leanne 1:03:59
well, well. I mean, not not like give up in life. I mean, but I was just Yeah, no, I understand. I think that there was no no treatment for me. That was gonna work because I've tried everything. Yeah. I'm not a big pill popper,
Scott Benner 1:04:16
though. The idea that just there's no answer. Like, this might just be my reality. Right? Yeah, I've got that kind of diabetes.
Leanne 1:04:24
Yeah. And I was, you know, thinking back you know, you reflect back on your mom and your your stepdad and you see the crap that they went through. And it's like, oh, I don't want to do that.
Scott Benner 1:04:35
No, I mean, your mom lost her sight. Your sister's kidneys are going like there's there's plenty for you to be scared of, you know? Yeah. Is there any chance one of those 11 kids will name a kid Scott? Can I just throw that out there now like tried to get a like you said you do anything. I don't really need you to do much. But I would take a name child or horse. Horse. I don't know we might be able to convince one. Yeah, no, no. That's probably not gonna happen. They're gonna have their own problems in life and then probably name it Benner. You think I'll take that? That'd be a cool name. Oh, cool. We'll roll with that, then I'll take. I think it's, interestingly enough, because I'm adopted. And my one brother has two stepchildren, but none of his own. And my other brother has a daughter. The I think the bloodline stops with me. My dad had a brother who didn't have kids, and he had a sister, so I'm right. Right. Like, I'm like that. Yeah, it's gone. If my if one of my brothers doesn't have a boy, that's that.
Leanne 1:05:39
Yeah, that's
Scott Benner 1:05:42
okay. I mean, I don't care how much it matters one way or the other. Yeah, to be honest with you. I'm not out here trying to keep this. I mean, it ain't so great. You know what I mean? I don't think the world is gonna be no offense to my brothers. They're wonderful people, but, but I'm just saying, you know, I don't think it's super important to get the name going. But that's interesting. You know, my dad. My dad's name. I've never said my dad's name on here before. But my dad was my dad basically had a girl's name. And because of that, he had a nickname. And his nickname was so it was just the first three letters of his last name, like people called him, Ben. But his name was not Ben. And if you and I sat here, it's two o'clock in the afternoon, if you and I sat here for the next seven hours, and I let you guess what my father's first name was, you'd never guess it. It literally was just, it's one of those things. Like I'd look at my grandmother and think like, what were they thinking? Is it Carol? No, that would have made sense even. Do you want three more guesses? I'll give you three more guesses. And I'll tell you and I'm gonna give you the first letter. It's L the mind boggles
Leanne 1:07:00
no idea. Yeah.
Scott Benner 1:07:03
Like how could this be? It's a woman's name. It begins with ln. Now see, that's even really a woman's name. That's a pretty androgynous name. Right? You Lin Lin could be a man. My dad, my dad's given name was Luverne. Luverne. How does that even happen?
Leanne 1:07:19
I have no idea. That's like, Sue. Yeah,
Scott Benner 1:07:22
there's a boy named. Exactly right. I didn't know we were gonna do a no, we were gonna do all country songs while we were sitting around together today. Yeah, no, my father's name was Laverne. People call them Ben. So, and my mom not a big fan of his. So I couldn't name a kid Ben. That's for sure. Nobody was naming a kid Luverne based, they sounded weird
Leanne 1:07:44
that he wouldn't go by verb.
Scott Benner 1:07:47
You know? I never even kind of weird. You're making sense? I don't know. Alright, man. Is there anything that we haven't talked about that we should have? Oh, I don't know. I mean, what made you do this? Just because I asked for type twos, right?
Leanne 1:08:06
Well, yeah, I mean, it was kind of impulsive. You know that ADHD? Sure, why not? And then it was like, oh,
Scott Benner 1:08:17
did you? Did you breathe? Think it as Time was passing?
Leanne 1:08:21
Yep. I was like, oh, but then talking to you know, John,
Scott Benner 1:08:27
on the board. Uh huh. Who also has type two? He's coming on the show. Right? Right. Yeah. Right.
Leanne 1:08:33
So then I was like, Okay,
Scott Benner 1:08:36
you can do it. Yeah, there's a small,
Leanne 1:08:39
good to see. And people may even help, you know, I mean, it's it's a tough one, because everybody wants to trust their doctors, and I don't trust doctors as far as I can throw him anymore.
Scott Benner 1:08:53
Well, I mean, listen, if you get a good one, then you're you're lucky, you know? And then you can but if you start getting money if you taken six different pills and injected a bunch of stuff and your blood sugar's you know, you're a one season the elevens. And your blood sugar's are four and 500. I mean, somebody, somebody's not giving you the right answer, that's for sure. And no, yeah,
Leanne 1:09:12
well, I guess, I guess, what I what I really mean by that is, when it comes to diabetes, it doesn't matter what type you are, if you don't take control of it. There's nothing the doctors can really do for you. You know, I
Scott Benner 1:09:28
mean, they don't know you. Everybody is different. Yeah. That's that honestly, and they just go by protocol. That is the most insightful thing anyone said on here in a while, you're 100%. Right? Really, you have to do this for yourself, and you have to take I mean, common sense, I think is of the utmost importance. You can't just fall into like patterns where you say, Well, this is what they told me it's not working so then it must just not work. Like it That can't be your answer. It's your health, like, at the end of bed at the end of poor health is death. You know, like you can't it's not like you're ignoring replacing a screen door on your house or a creaky board on a floor or something like that, you're not gonna just start walking around at one day, like, you're gonna, you're gonna die. Like you were on your way to dying. You know? And you figured that out. Like, it's, it's really interesting that you had the same exact kind of epiphany thing that I've heard so many people talk about on here, so many adult type ones, who would have described their care as shaky, maybe have a child or get married, or have a child get diagnosed, and then they realize, Oh, God, I have to stay here. And I'm not on the quick path to staying here. I'm on the quick path to leaving, and I have to fix it. And it's the same thing happened to you. It's, it's got nothing to do with diabetes or type one, it's a human thing. Like you. You were faced with an ultimatum that didn't have an escape plan. And you were just like, Alright, why I mean, I'm not I'm not gonna, I'm not leaving. So I gotta do something. And I'll be damned. Like, we ended with no training whatsoever and only a podcast under your arm, you're giving yourself three and a half units of insulin an hour as a type two in a basil. Like that's a lot of you're laughing. But that's a lot of it's a lot of common sense. It's a lot of caring about yourself. It's a lot of saying, I'm not going down without a fight. And that's, that's all really important. You know, you need those things.
Leanne 1:11:38
I don't do anything without.
Scott Benner 1:11:41
I mean, listen, I wouldn't went on that damn vacation after the kid got started. I'd tell you that much. I'd been like, look, kids, we're not going to Silverwood right now. I need a minute. But you were like, Let's go. Load up load.
Leanne 1:11:56
I actually I was in the hospital. I told my my 15 year old I told him and I said, Hey, little change of plans. I'm gonna need you to pack all our bags for me Sure. We all have swimming suits and, and clothes to wear.
Scott Benner 1:12:13
And when we get home, we're still doing this. You know,
Leanne 1:12:17
we had to buy hoodies we had.
Scott Benner 1:12:21
But you hear people talking about being afraid to go to college? Or, you know, how's my son gonna do this? How's my daughter gonna do that? You were just like, we'll do it. It'll be alright. And you just did you know? Yep. Yeah,
Leanne 1:12:33
well, I'm not gonna. I decided since she was diagnosed, and she was crying. And she was like, I'll never be able to have this. And I said, Listen, baby, you're gonna be so sick of candy. You're not gonna want anymore?
Scott Benner 1:12:46
Yeah. No, no kidding. I've heard art and be like, I don't want that. Please don't give me that.
Leanne 1:12:50
Yeah, yeah. So we we actually don't use candy or anything like that to bring her blood sugar's up anymore. Because she's so sick of it. Yeah, I believe it. I really do. And so, you know, all we do is eat. Text or eat
Scott Benner 1:13:09
snack? Yeah, yeah, no kidding. And she's doing okay, how much of it she managed on her own.
Leanne 1:13:16
Most of it. Good for her. I watch her follow up. And I tell her, you know, if I see her trending down and she's in school, not really paying attention. I'll just shoot her a little text if she means just a little bomb. I'll say snap. Yeah. But if she needs a full fledge, stop that low.
Scott Benner 1:13:41
Eat. And that's it. And that's how you guys are doing it. That's really wonderful. That's
Leanne 1:13:45
it? Yeah, she matter of fact, she. She went to spend Christmas vacation. She spent a whole week at her friend's house.
Scott Benner 1:13:55
By yourself. Yep. Oh, good. You didn't worry about it. But you watched her a little bit from a distance with a Dexcom follow.
Leanne 1:14:02
I have alarms
Scott Benner 1:14:05
where they said that by the way for her.
Leanne 1:14:08
Um Let me check my other phone here.
Scott Benner 1:14:12
Where do you set yours?
Leanne 1:14:16
Mine Oh, okay. Hold on. So her settings I have her at at 75 for her low to alert me. And then on the other app I on on one app. And then on the other app, I have her at 70. Okay. So I know the difference between the two. Yeah. And then her high is one ad right now but we're bumping that down next week to 150
Scott Benner 1:14:53
for you. That's excellent. And what do you do for yourself?
Leanne 1:14:56
So my mind is set. I My correction range is 70 to 80. My suspend is 70. My Basal rates are 84 Yeah,
Scott Benner 1:15:11
you don't get very high. You're saying anymore?
Leanne 1:15:14
I don't get usually over 120.
Scott Benner 1:15:18
That's excellent. Good for you. Well, yeah, now they are gonna make you work in that clinic.
Leanne 1:15:25
Well, I don't I'm not as aggressive with hers because she is she has hormones going on and what she's Yeah, so one ad with hormones is pretty good, I think. No, I
Scott Benner 1:15:35
do too. I also think she hasn't been doing it that long. Like you're talking like a professional here. But I mean, how long have you been at this? Really? Not that long. Right? Is she honeymoon? Do you think at all or? No? She's done with that now, but you did see it in the beginning.
Leanne 1:15:52
She was horribly bad. That's why I pushed for the pump so bad. Um, and then I got her on the pump. It's just been the last last month that she quit with any money. Okay, is it getting? Yeah. And then her needs went? doubled.
Scott Benner 1:16:10
No kidding. That quick. Yeah, that's what we add to it. It's hard to like, people come to me all the time. Like, it can't be like, it was just this. And now it seems so much more like a it can be like it just, it can happen. It can happen quietly and slowly, or it can happen quick and loud. You know, there's no say in how it's going to end if you have a honeymoon that you're that you're living with.
Leanne 1:16:31
Right. So like, for instance, you know, like I said, She's, she's got hormones going on right now. And she's in range 97.5% of the time.
Scott Benner 1:16:42
That's great. You're doing terrific. Are you thinking about the Omnipod? Five, are you gonna stick with a loop?
Leanne 1:16:48
I'm gonna stick with loop. I like the flexibility of it. The better control the tighter control. Now, you know, I'm glad that they have the Omnipod fives for you know if she goes off to college or whatever. That will be an option for her. Or if something happens to me. That's an option for her.
Scott Benner 1:17:08
Yeah. Well, yeah. Because you had to did you did you set that whole thing up yourself? Like, download the? Yeah, okay. Yeah, I gotta be honest, I couldn't do it.
Leanne 1:17:19
It was it was a challenge. I set that up. I set up Nightscout. I set up the loop follow. And then of course at school yesterday, she somehow reset her phone. And so she was stuck with her basil. And I just update yesterday. And so she was stuck with her basil. And I was like, the school called me and I was I just been there. Drove 50 miles up to get my grandson because he was not feeling well. Got back home and had to drive back up there to get her. But I do see 50 Pull that pawn off of her right now.
Scott Benner 1:18:04
It's gonna take you too long to get there. She took it off till you could get there. Right so she wouldn't be getting the extra insulin she didn't need. Right. Interesting. But you're like, oh, yeah, like MacGyver over there.
Leanne 1:18:16
She got up to 154 before I got there, it took me about 25 minutes.
Scott Benner 1:18:21
Okay. So put a new pump on put new settings with it.
Leanne 1:18:26
Well, I had no I had to bring her whole phone home and
Scott Benner 1:18:31
reprogram
Leanne 1:18:32
it. Reprogram.
Scott Benner 1:18:37
With this kids go to school. 50 miles from your house.
Leanne 1:18:40
No, they're 25 miles out. But I was in town yesterday when they call Oh, and you
Scott Benner 1:18:45
were farther away when it happened. I got it. Yeah. All right. I don't pretend to understand where you live. It sounds like you live in the middle of a forest.
Leanne 1:18:52
I live in a in a place called hum tulips, Washington.
Scott Benner 1:18:55
Wait a second. Don't go anywhere. I was about to say goodbye. But now it's not happening. That's a real place. You didn't make that up. I'll be Damn, that's a real place. So is there another meaning to hump tulips? Or do you live in Tulum? Washington, what's going on?
Leanne 1:19:17
Well, there's a couple of different meanings for hump to UPS, but
Scott Benner 1:19:24
alright, I'll figure that I'll figure that out later. Oh, my god. I can't thank you enough for doing this with me. I really appreciate you taking the time. Well, it was fun, though. I had a great time. Are you kidding me fun. This is the best podcast I've ever done in my life. I expect to be nominated for an award for this. I don't know where but I want it to happen. I had a wonderful you really are. You were just unexpectedly delightful and insightful. I didn't know what to expect. I would like to have more conversations with type twos and a If they're listening, I want them to know that what I expect is that most of the conversation is going to be you saying, I don't know. You know, but I think I think there's some value in hearing that other people don't know. Because, you know, then someone listening, whether they have type one or type two, maybe they'll feel a little less, like a failure for not understanding, you know, and maybe that's the first step to kind of finding your, your balls and, and going for it, you know?
Leanne 1:20:28
Right. You know, it's, it's hard. It's, it's really hard when when you do feel like a failure, because you're doing everything they tell you to do. And you're not getting anywhere. You're pedaling backwards because there's damage being done to your body. My doctor told me to just make sure my my morning blood sugar's were 150 That was your goal. That was the goal. Yep.
Scott Benner 1:20:55
Try not to die right away, but you won't live too long. But yeah, we're gonna do that whole,
Leanne 1:21:01
and I just kept thinking, who's gonna take care of all these?
Scott Benner 1:21:06
No kidding. I mean, honestly, that's a lot of kids out. How, by the way, how old are you? 50
Leanne 1:21:12
I'll be 52. Tomorrow,
Scott Benner 1:21:14
tomorrow. And how young is the youngest kid? Oh, eight. Okay. All right. Yeah. All right. Well, you need to make it near 60s At least just to get that one out of there. Right. Yeah. And for how about for you, by the way, like, you know, I'm sure there's things you'd like to do. Chief among them not be aching, just all day long and in pain from just cleaning the house and stuff like that? You deserve to live? Well?
Leanne 1:21:41
Well, I you know, I my goal. When I started having children. My goal was to be done and have all the kids out of the house by the time I was 40. Yeah, yeah.
Scott Benner 1:21:54
Got that pretty wrong.
Leanne 1:21:57
Well, now I'm going for 6565
Scott Benner 1:22:02
I'm hoping to own something that I enjoy once before I die. Like that's how I think about it. Like I have all the money goes out the door. For all the things for the kids. Every once in a while. I'm like, I wonder what I would have done with that money if they weren't here. Like what I've just saved it maybe that would have been nice or bought something nice or gone on a vacation. Like I haven't been on it. You said you went on a vacation I got jealous was like oh, that sounds
Leanne 1:22:27
we go somewhere every just about every year. You know what be it be at home to Alaska, or you know, I took him I took him on a six week vacation to Las Vegas.
Scott Benner 1:22:42
You went to Vegas? What do you do in Vegas for six weeks with kids?
Leanne 1:22:47
Well, we we rented a house and had a pool and just hung out. just hung out.
Scott Benner 1:22:54
Damn, that sounds like the right idea. Alright, I'm doing that. So just take an Airbnb or something you just jumped in and why not kidding. I'm thinking I'm kind of crazy like that, though. You know? Oh, listen, whatever kind of crazy. You are is working fine. So you're you're okay, you know. That's amazing. All right, I'm gonna let you go. Thank you so much. Can you hold on for one second? Oh, thanks.
First, I want to thank Leanne for sharing her type two story. I'd also like to thank Dexcom, makers of the Dexcom G six continuous glucose monitor and Omni pod makers of the Omni pod dash. I'm also going to remind you to go to dexcom.com Ford slash juice box to learn more about the Dexcom G six. And check out that free 10 day trial possibility. While you're on the internet, you can also go to omnipod.com forward slash juice box, see about the possibility of their 30 day free trial the Omni pod dash, we're just get started right now just jump in baby. If you're using insulin, these devices are for you. The next time you see a type two story pop up on your feed, it will be with John. But we need more people to share their stories. So I need you to reach out. If you have a type two story that you want to tell. Find me. Okay, go to juicebox podcast.com. And there's a link there where you can send me an email. I hope to hear from you. Don't forget if you have type one diabetes and you're a US resident or you're the caregiver of a type one and a US resident, you can go to T one D exchange.org Ford slash juice box right now and take a survey that will take you fewer than 10 minutes that will help people living with type one diabetes and support the podcast and make you feel good because you're doing good stuff. And does other stuff do you'll read about it when you get to the link T one D exchange.org forward slash juicebox. Please subscribe and follow in the podcast app that you're Listening in right now that's all I've got for you I'll be back very soon with another episode of The Juicebox Podcast
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#663 Neuf Means Nine
Greg is the father of a type 1.
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or wherever they get audio.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
COMING SOON
Please support the sponsors
The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here. Recent donations were used to pay for podcast hosting fees. Thank you to all who have sent 5, 10 and 20 dollars!
#662 Control IQ Ninja
Jeremy is a Control IG Ninja.
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or wherever they get audio.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends and welcome to episode 662 of the Juicebox Podcast.
Today we're going to speak with Jeremy who is a past guest on the show. Today's topic is much different than his first topic. We'll cover that later in the podcast. But today Jeremy's gonna tell you about how he manages his son's type one diabetes with tandems control IQ. And let me tell you something, Jeremy is a next level guy, he's a bit of a ninja. He took what he learned on this podcast, and just kept learning about control IQ, and today he's going to tell you all about how he does it. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your healthcare plan, or becoming bold with insulin. After the show today, if you'd head over to t one D exchange.org, forward slash juicebox and fill out the survey, I would appreciate it you need to be a US resident who has type one diabetes, or is the caregiver of someone with type one, it only takes a few minutes T one D exchange.org forward slash juicebox.
This episode of The Juicebox Podcast is sponsored by the Contour Next One blood glucose meter, head over to contour next one.com forward slash juicebox to see my favorite blood glucose meter. Today's show is also sponsored by us med A plus rating with the Better Business Bureau always provides 90 days worth of diabetes supplies, has fast free shipping and accepts over 800 private insurers. And on top of that they take pride in you receiving better service and better care than you're accustomed to getting with your current supplier. Go to us med.com forward slash juice box to get your free benefits check or call 888-721-1514 Make us med your diabetes supplier. What episode were you on the first time?
Jeremy 2:26
Um, it was the after dark divorce episode. Yeah, we
Scott Benner 2:30
didn't really talk about like, yeah, okay, so go ahead and reintroduce yourself.
Jeremy 2:35
Okay, I'm Jeremy Ross Meyer. I'm a single dad of a type one diabetic named Damon is 13 years old. And we have been diagnosed for four years and our agency has been between 5.3 and 5.8 for over three and a half years.
Scott Benner 2:59
Wow. And in these three and a half years, have you always been using control IQ or has it been different managed? No,
Jeremy 3:06
we we've done all three, we've done straight pumping with tandem. We've done Basal IQ, pumping, and control IQ pumping, all maintaining that same a one C spread very nice. Okay. I mean, sometimes I feel like I was blessed to be able to straight pump because you really really understand what adjustments do to blood sugar. But it you can start anywhere. Really?
Scott Benner 3:35
Yeah, you could figure it out with needles, you could figure it out with pens, you can figure it out with a pump like it's all just watching the insulin go in and seeing what it does. It's I mean, it's great obviously to be able to adjust your basil on the fly and not have to wait 24 hours to inject the gas to try to make an improvement or change. Just real quick for people. That episode that Jeremy was on before 508 After Dark adult child of divorce you actually came on that one because you started out. Let me see if I can remember this Jeremy, this will be interesting. You weren't Oh no, I
Jeremy 4:09
don't know if it is that when because you said adult. Oh,
Scott Benner 4:13
I said the wrong one. Excuse me. Cheese 372 After Dark divorce and co parenting.
Jeremy 4:19
There you go start one
Scott Benner 4:22
second a pot. Actually. There's a lot of them here. I have one too. I searched divorce in my episodes and came back with four. No, no kidding. All right, yours is 372 about co parenting because if I'm remembering correctly, you are divorced as your child is diagnosed. And and we all get along, right? And you guys actually get along, right? And that's what you're talking about. Right? I did get a lot of impact. Impactful letters back from people where they're like, can you just interview somebody who's not getting along and how they're doing it? Yeah. And I said good. Like getting somebody who's not getting along with their ex to come on a podcast and talk about it as like people are not generally excited to divulge that kind of stuff. But I have gotten a little closer in a recent episode 625 was about divorce and disagreement and that person. Yes.
Jeremy 5:15
And it was an excellent, excellent representation of the other side.
Scott Benner 5:19
Yeah, yeah. So I finally got there. It's not I'm just saying not easy to get somebody to come on and talk about their spouse or their ex spouse. Yeah. Especially if they're not getting along very well. All right. So Jeremy, you're back today? Because? Well, I know you, and I know you, especially through the Facebook page. But through our previous conversations, and we tech sometimes, and you are very good at using control IQ. And, you know, I've had somebody on recently to talk about it. And we I thought had a pretty surface conversation about it. And I didn't know enough about control IQ to push back in certain places. So you're sort of on here to help me dig deeper? Sure, yeah. So I mean, kind of take it away. Tell me what you what you would tell somebody else if I said, Hey, should I should I try control IQ, what would you say?
Jeremy 6:10
So just to kind of give you an idea here, I also am, this is not an invitation to contact me and ask, I also can follow three other children up here in Montana that are on control IQ, I also control their pumps, they're a onesies are all below seven, as well. So I've kind of done this long enough with enough samples to understand what needs to be done with control IQ to get it to work. Not just on my child, but on different age children on male females in puberty out of puberty. But what it really comes down to is that, before we even get into control IQ, there's a few things that, in my opinion, it doesn't matter what pump you're on, that needs to be better understood or mentioned, before we get into control IQ. Stuff like consistency, how you treat lows, what you treat lows with using protein at night, and just allowing basil to do its job. The way that we treat like, between my son and I is we either use mots apple juice, that's the all natural stuff. Or we use gummies. We know how much apple juice to drink to get to three carbs, we know how much to drink to eight carbs, and it's consistent. And it works the same way every single time. And you're going to hear the consistency through the control IQ point of view as well. We know that what a gummy will do to his blood sugar. We know that when he's dropping this hard he needs this many gummies the longer that you stick with the same sort of thing. The better results you're going to have instead of just throwing Oreos that your child
Scott Benner 8:17
then like let me let me make sure because I know what you're saying. But I want to make sure we're all clear. Sure there are impacts variables all over diabetes, including the things you don't think of as being impactful. And the idea of you're getting low Oh, what do I do doing something consistent breeds a consistent response and more and more importantly allows you to move forward without crazy highs or crazy lows or things that you don't expect to happen so if you're consistent with how you bump your your low blood sugars, then you'll be consistent with what happens afterwards not just like hey this time eat an Oreo next time have a piece of chocolate cake this time yeah cuz soda like that kind of thing. Treat the yes,
Jeremy 9:02
there's always times dt the whole fridge Yeah, right. You know, there's always those extremely high delta where they're about to pass out and you just grab anything and everything and throw it down their throat doesn't happen often. If it is happening often there's something wrong but moving moving on from that we have to kind of talk about what what I call garbage in garbage out. Which means that you know, you need to be checking your Dexcom ratings, not just doing nothing about them. That starts with a good glucometer and I this is not an ad for
Scott Benner 9:45
you want me to do the ad Jeremy. The Contour Next One blood glucose meter. Are you about to say that are you about this? It's a great meter.
Jeremy 9:51
I just couldn't remember what the hell it was called. But you use one thing. But anyways, in the thing that we've tried difference. There are tons of third party studies out there that shows that that Contour Next One is the most accurate meter on the market period. Now, I understand there are some people that, you know, can't afford, you know, something like that, because the strips are fairly expensive. But they're, there's so many times that that meter will exactly match Dexcom. It's not even funny. Yeah, I agree. And then there's certain things about Dexcom. Like you need I hear I hear a lot of people say, Oh, well, we never calibrate. We're a family that calibrates with my son. If you do not calibrate, the second it comes on, it will dump Low to low, and it will die. You have to calibrate my son immediately when it comes on. And then you're good for the first two days. You have to calibrate on the third, then we have to calibrate on the eighth every other fingerstick that we do every single morning this this consistency. And every single night before he goes to bed is normally within five points.
Scott Benner 11:11
But you still do it, you still do it every time.
Jeremy 11:15
You still do it every single time. Yeah, you you have to the center will die. We've we've heard you know, Kevin Sayer Come on, and say that it's just it doesn't work the same way for everybody. We just figured out what works for us. And with a very accurate Dexcom reading from a very, you know, accurate glucometer you can stop the garbage in garbage out. And what I mean by that is only testing the blood sugar in checking Dexcom whenever this site arrows sideways, and making sure you understand how the Dexcom works.
Scott Benner 11:59
So that the numbers you're working with are good or accurate. So they can end up making good decisions with Arden's interesting artists decks, either works, boom, or needs to be calibrated on the first day. Yeah, one of the other. I don't, I don't, I haven't seen a rhyme or reason to it, I would tell you the last six of them we've put on I haven't had to do that. And then before that a couple of them need lit people's body chemistry is different. There's all kinds of different things going on. But your your specific point is so incredibly important and valid, which is you are making decisions, measuring a medication based on a number and you might be getting that number with a meter that's not accurate, or to CGM, that's not accurate. And then you're making decisions and, and running forward. I love that you test twice a day.
Jeremy 12:48
But here's the bigger picture. Scott. Yeah, you keep saying that I'm making decisions. Now putting algorithms and control, right? You have bad Dexcom ratings. It's 100 points higher. And it's dumping more insulin than it should. Garbage in, garbage out, you have garbage information going into the algorithm, you're gonna get garbage out. So it is very vitally important to make sure that you have a Dexcom rating that is reliable. Yeah, this is this is this is all algorithms. This is Omnipod. Five, this is control IQ. This is going to be control IQ 2.0. Whatever else comes out from Medtronic, you know, everything is based off of that blood sugar reading. And if it's not accurate, how can you expect your results to be accurate?
Scott Benner 13:43
They can't. And you have to take some responsibility for that yourself.
Jeremy 13:47
Yes, yeah, absolutely. Yeah,
Scott Benner 13:49
there's, can I take a tiny like, brief little sidebar here on the Sure. I'm forever interested when longtime type ones come on. And they'll say things like, I didn't want to get a CGM until there was no calibration needed. Because it's always the inference is always that it's such an inconvenience, like, why would I take on this new thing, if it still needed my effort? And I think that's an old timey way of thinking about it. You know, I think that I mean, a CGM for my daughter is first, right? Like seriously, if the house was burning down and I could grab a pump or a CGM on the way out the door. It would be the CGM, right? Not to say that it's a one of the other decision. I'm also of course, a huge fan of the pump. But But my point is that is that the idea that if it's not completely nothing, I have to touch you ever or nothing? I have to think about that. I don't want to do it. I don't understand. You know, like, this is just this is where we're at with this technology and, you know, using Dexcom G sixes, as an example, you know, they tell you, you don't need to calibrate that means that Got it through the FDA, and you're gonna be okay. If you don't calibrate, but you that might be that one day the thing thinks you're 130. And you're, I don't know, 150 or you're exactly you're 80 and it says you're one I don't know, like it might not.
Jeremy 15:15
Here's the thing, though, Scott, is that if you want better than average control, right, you need to have better than average information going in effort. And in order to get that better than average information going in, you have to calibrate. You hear people all the time saying, oh, Dexcom is 15 minutes behind, not if your line is straight. Not it. That's only whenever it's falling or rising. If it's if you're primarily straight, and I know and I will get into this later, that I'm not saying my son is straight all day long. He is not he is just like garden, he has trips to 180 Maybe once a day, and he comes back down. I am not one of those people that that craves a absolutely straight line. I do not go nuts. I just don't allow it to get nutty. In the long run. Yeah.
Scott Benner 16:14
But your point is, is that when you're in the middle of stability, and you're the blood sugar is 96. And it's been 96 for the better part of three hours. If you're there's a way to be certain that that's true. And by checking out checking with a finger stick and then telling Yes. And then calibrating sometimes,
Jeremy 16:32
and that's first thing in the morning when they first wake up. Okay, that's how it's working last a water. Check your blood. He knows every morning glass of water, check your blood. Water gets blood moving, and he doesn't have anything impacting his blood sugar. Dexcom should be pretty straight on.
Scott Benner 16:49
Yeah. And it is normally. Oh, yeah, yeah. Okay. Yeah, it's
Jeremy 16:54
like within five point, if it's within five, we don't touch it. If it's within 10. Like if it's 10 or more, we're calibrating. And that's both. That's way sorry for the swearing. That's that's just it's not acceptable. And I know that may sound extreme, but it's not. It really isn't
Scott Benner 17:13
from your from your experience. What's my question here? This is just proving out to you over and over again. Yes, but it is not white guys calm would tell you to do is that correct? Absolutely not. Okay.
Jeremy 17:28
I'm just like, you know, dumping more insulin on your kids 30 minutes after he just ate is not what an endo would tell you to do. So I guess, moving on more to like the pump. The next thing that you kind of have to remember is that you have to understand the pump that you're on. Doesn't matter which pump it is you have to understand how it works. Especially if there's no algorithm involved. Control IQ is not a miracle machine, like a lot of people think adjustments still have to be close and made and sometimes made often. But you start looking at the tandem and I don't want to start sounding like a tandem shill, but I am. The big things with tandem is that you can adjust basil in point 001 increments after point one, like Omnipod, or Medtronic can do point 05. That's a 50 times increase in adjustability. And we all know how much Basil is how and based how important Basil is. Something a lot of people don't know is that the on a tandem. The carb ratio if it's under 10 you can adjust it by point one instead of one year if eight isn't working. And nine is too strong. You can do 8.1 8.2 8.3 8.4 A point but you can do by point one to dial in that carb ratio. Once again, this comes back to consistency. You need to use it you can't just flop on either or if nines too strong you can't say oh well I'll just you know turn their Basal down for a half an hour. No, get it right. I mean, let's be honest. Our kids normally eat the same thing every morning at breakfast. I tried to offer him a million different things but it's always pancakes with chocolate chips, strawberries, and milk. Wow. Every single morning a lot of cooking. Well, we always get those frozen. Okay, okay, so pancakes.
Scott Benner 19:51
Oh, I got your mind Jeremy. You're whipping up pancake batter and cutting up strawberries and so, so back to that other point. You're saying that, like, for instance, Arden's carb ratio is one to four and a half, but it could end up being one to 4.7. Instead, yes. Right. And you have and
Jeremy 20:10
it will, it will allow the tandem will allow you to make those 10th adjustments if the carb ratio is under 10. And you may think, Oh, well, you know, that's just being too picky. Well, no, like, whenever carb ratios get below 10, they get crazy. You know, my son is 13. He, according to his Endo, I don't really understand it. There's four stages of puberty. And he's in stage three, and He's peeking right now. And he doesn't understand how he's still less than 1%. Low. And it's, you know, he doesn't understand how he's 5.6. And he doesn't understand a lot. But, you know, the proper pump adjustment is one thing, you know,
Scott Benner 20:55
yeah. So, these, all these little things put together? Or the answer or the answer to stability, right? It's the Yes, making sure that the data you're working off of is sound. It's not just randomly picking an amount of insulin, but actually being able to dial it in very closely. Yes, and it's consistency with how you are addressing low blood sugars. It's consistency with drinking that glass of water in the morning, before you test your blood sugar, like all those little things, do you find them to be overwhelming? Or did they just happen? Pretty?
Jeremy 21:30
No, they they seem a little at first, and I've had a few parents tell me? Well, that seems like a lot. I'm like, No, it doesn't real after about, you know, a week, you'll be like, Oh, this makes sense. And the families that I do help, you know, and that they do get this way, you'll see like a huge improvement. They go, Oh, I get it now. Okay, because you'll start seeing those improvements. You know, it's not just in the pump, or the algorithm. It's how you're treating everything else.
Scott Benner 22:00
So when you hear when you hear me say that more effort upfront, saves you a ton on the back end, that's how you Yeah,
Jeremy 22:09
yes. And but the thing is, is it doesn't become a lot of front, other than the first couple of weeks, while you're getting used to once you get it, you're not being strict, you're not forcing, you know, I'm lucky as hell that my son loves apple juice, and he's never become bored of it. I asked him like every other month or so hey, do you want to try something else other than apple juice? And he goes, nope, I'm good. Yeah, but, you know, boys, etc, sometimes.
Scott Benner 22:43
Come tell me if this sounds familiar, you're all set up with a diabetes supplier. And they've told you don't worry, we're gonna send you your supplies on time, you're never gonna have to call us again, this is going to be easy. And then one day, your stuff doesn't show up. You run out of your Dexcom supplies, your libre supplies, your insulin pumps, and the new ones aren't there the way they're supposed to be? So you call them up on the phone? And what do you say? Well, I don't know what you say. But here's what I say when it happens to me. Say you guys told me this wasn't going to be a problem. They say is this always happens at the end of the year? Well, we needed a new prescription. And we reached out to your doctor, but they didn't get back to us. Then there's this long pause. Like it's not their fault. The people who told you they were going to take care of this are now foisting the blame onto someone else. What does that mean that they reached out to your doctor? I don't know. Does that mean they sent him a fax, they call them on the phone? They send up smoke signals? I couldn't begin to tell you what my old suppliers did. What I can tell you is what US med does. It's simple. They get it done. There's no none of bones. Not supposed to curse don't Yeah, it's but you hear what I'm saying? us mad tells you they're going to take care of it. They're going to get a script from your doctor than they get a script from your doctor. That's simple. US med takes over 800 private insurances. They accept Medicare nationwide. And they always provide 90 days worth of supplies with fast and free shipping. carry everything from insulin pumps to testing supplies CGM. They have what you need. All you have to do is go get your benefits checked at us. med.com forward slash juicebox. If you don't like the internet, you could also call 888-721-1514. Well, now we know where you're going to get your blood glucose meter at but now we need to decide which one are you going to buy? If you ask me, I'm gonna say the one that my daughter uses the Contour Next One blood glucose meter. I have no copy in front of me. I'm not looking at a website. Let me just tell you why I would pick that eater. First thing that pops in my mind, it's easy to hold, easy to carry, easy to put in a bag, or pair of pants, or wherever you carry your stuff. And I mean, like a pocket. It's small, but not too small. It's easy to read has a bright screen and a bright light for nighttime viewing. The test strips allow Second Chance testing, here's what that simply means. Should you touch the blood but not good enough, you can go back and get more without interfering with the quality of the test result. And that is not to say that it needs a lot of blood, it actually doesn't need very much at all. The sample size I find to be very small. This is in fact, the easiest to use, handiest and most importantly, most accurate blood glucose meter that my daughter has ever used, that I have ever used, that I have ever been in the same room with the Contour Next One blood glucose meter, go find out more about it. At contour next one.com forward slash juicebox. When you get there, you're going to see a very informative website, and easy ways to get yourself a great meter, it's actually possible that the meter and test strips could be cheaper in cash than you're paying right now through your insurance for your current meter. And there's very little chance that that meter is as accurate as the Contour Next One, there's only one thing left for you to do. Go to a browser type contour next one.com forward slash juicebox. You will also find links in the show notes of the podcast player you're using and at juicebox podcast.com. And by the way, if you're listening in an audio after this podcast, please hit subscribe or follow. Alright, that's it for the ads. Let's get back to Jeremy he has a lot more to share about how he uses control IQ.
Jeremy 26:50
The biggest thing is like we're talking and once again about pump adjustment is you'll hear often people will tell you to adjust Basal by 10%. That seems to be a pretty standard adjustment. But I always tell people not to and here's why. Let's say your kid is point seven five an hour, and you add 10% to that the math to that is it will end up equaling out point eight to five, I believe. And that will be a difference of point 075, you're adding point 075 When adding 10% 2.75. So then there are 825. Which tandem doesn't have a problem doing it can go out to that 1000s Remember, so eight point or sorry, point eight to five plus 10%, they need more, another Basal increase, you're now at point 907. And that's a difference of point 082. So you've went from an increase at seven five of point 075. And you've now increased Basal again by point eight, two or point zero a two. Then from 907, you add 10% You get point 997. Now you're adding point 09. It's not consistent. Every single time whenever I first started out, I the best thing like the CD could have told me is every single time or she kind of showed me on an AGP report. And I'll kind of talk about that a little bit later. But every time you see a change here, I want you to just change the pump by point zero to five. That was my quote, baby step. That's what she called the baby step to me, but it consists and then it's consistent point zero to five because you will know what point zero to five does. If it keeps increasing because you're going by 10% There's no consistency there, you're adding more and more and more or taking away less than less. Currently, point 025 is a huge jump for us. Once you get basil dialed in enough. I literally move my son's basil by five 1000s of a unit of basil per hour. I know exactly what that does. And it's normally nine out of 10 times enough to get him perfectly back in life. Wow. If you take our Dexcom 90 Day AGP report it is a straight line with very little variation. And it's all because of the consistency it's knowing what that point 005 Or a point 01 change in Basal will do and keeping it consistent.
Scott Benner 29:53
How often do you think you've changed his Basal rates?
Jeremy 29:57
So I changed them Two days ago, before that I had not touched them in a month and a half to two months, even in full bore puberty. And he's still his average blood sugar is still down there, very low one, hundreds and zesty is in the mid 20s. That's excellent. And I wasn't able to I once you get dialed in and you fully understand how to keep things consistent, things stay consistent. Now I understand there are people in honeymoon that does not apply to you. There are people that you know, have sports does not apply to you while my son is active. Um, that's it. A lot of it's about knowing how to treat before sports before jumping on the trampoline before doing all this other stuff. He knows like before PE because he's moved into independent at school. He knows before PE he goes and asks teacher, Hey, what are we doing today? And if it's something like we're playing dodgeball, or we're running the mile he knows to grab, you know, something out of his bag, and get some carbs move it. And that's just more consistency. But let's you want to get into control IQ. Yeah. And I totally know.
Scott Benner 31:16
I appreciate your overview of how you think about it, though. Yeah, I mean, really, that's very helpful to me. Because I mean, you'll admit, I would imagine, maybe you won't, but you listen to the podcast. So you're thinking at this. I think you're taking like, things that I talked about, and you're being more granular with them. Yeah, much more so than I ever AM. And, and you're fine tuning things down even farther, like you're, you keep tightening that that wrench until it's exactly where you want it to be. It's, it's amazing. I mean,
Jeremy 31:49
but the thing is, like I said, is that once you get there, you don't have to do much work once it's about learning the patterns and staying consistent, right? And looking at the AGP report at least once a week, and saying, Oh, look at that, I might want to scooch that up a little bit. Instead of just, oh my God, what's going on? It's like, one day, it's just random. If it happens two days for me, there needs to be a change. If the third day, it's still not right, you're gonna get changed again. You know, something's gonna change. You know
Scott Benner 32:25
what my bigger takeaway from this is? That wherever you are. You're not too far. Why do I how do I say this? Hold on. Let me Thanks, Jeremy. If your management style keeps you at a 200 blood sugar, and suddenly your blood sugar tries to jump to an average to 10 blood sugar, you don't have to manage much to get back to 200. If your average management keeps you at 150, or 120, or 110, or at whatever your management style is, once you're there, and you can accomplish it, even when other variables come in and try to move you off of your success. The adjustments to come back to where your norm is, or not these great, crazy things that need to be done. Is that the thing you're telling me? Yes. Okay. All right. I agree. Okay,
Jeremy 33:14
so yeah. Let's talk about algorithms and how, how at least control IQ works. Because I often see in post, people saying, way, way wrong things. And I often want to correct them, but I often come off as a jerk. And oftentimes Scott has to get on there and say, Oh, well, like Jeremy is a really good guy.
Scott Benner 33:40
Boys are not well, sometimes boys are not good at communicating and writing
Jeremy 33:44
No, no, no, absolutely not. So the first thing that you need to know about control IQ, is there's three different modes, there's normal mode, there's exercise mode, and then there's sleep mode. We do not we're not sleeping beauty, we do not use sleep mode, 24 hours a day, there's a lot of people that swear by it, but my endo would come unglued, and I'm just not going to deal with it. Our results are fine, we don't have to go there. So in normal mode, this is where control IQ is at 90% of the day if you're using control IQ as it should be. I'm not saying it's the right way because there's many ways to skin a cat. So in normal mode control IQ will target 112.5 I know that's a weird number, but it is a real number. However, we'll adjust the Basal based on predicted blood glucose levels 30 minutes out that six readings. Now if you're maintaining between 112.5 and 160 it will deliver the settings that you yourself or your end have put into your pump, nothing changes, it's not doing anything but running off the settings inside your pump. Now, control IQ will increase Basal insulin. If the sensor glucose value is predicted to be above 160. In the next 30 minutes, once again that six readings it looks at and says, okay, they're moving by plus five, the delta is moving by plus five, every five minutes. If I apply that six readings out, are they going to be above 160? Yes or No? If yes, it's going to start increasing the Basal. Now control IQ will decrease Basal insulin delivery, if the sensor glucose is predicted to be below 112.5. In the next 30 minutes. Once again, six rings out. If you're 180, and you start dumping by 20s, it's going to start you know cutting insulin control IQ will stop all Basal insulin delivery if the sensor glucose level is predicted to be below 70 In the next 30 minutes. So if you're dropping hard, and if it depending on how fast you're moving, if it thinks that you're going to be below 70, in the next 30 minutes, it will cut all insulin. Oftentimes, you have to you have to understand that when setting your Basal that while it's important with control IQ, insulin sensitivity factor is just as important as Basal if not more important than Basal with Ctrl IQ. Okay, because the pump uses the ISF or the insulin correction ratio or the correction factor. However you want to say it to determine how much insulin to increase or decrease when making its modulation to the Basal. So what I like to tell people is to think of it as an aggressiveness knob. If you're seeing big cycling, which means the start to go high, and then the you start to go low, and you're kind of riding a wave all night long. What that means is that you've actually got two wrongs, which looks like a right. While it's fairly steady, you're cycling. And what will happen. This happens I know with loop a little bit too. Not sure about Omnipod five yet. But what happens is if you get the Basal a little loose, you'll start drifting up, then control IQ will say oh, they're drifting up, we need to add more insulin, then ISF is a bit too stiff, and it will start sending you a low and you will cut insulin, and then you're stuck in and then you'll start going high because of the cost of insulin, then you'll go low, because you end up cycling,
Scott Benner 38:06
bouncing. Yeah,
Jeremy 38:07
so what looks normal, might be two wrongs look like a right. So and that's the biggest complaint is that Basal IQ cuts insulin, then they go high. And then they overcorrect and they go low. Right. So your pumps already trying to handle it. And you're not allowing it to because of your settings.
Scott Benner 38:28
Are you saying that this becomes obvious when you see basically the settings fighting with each other? There, there's
Jeremy 38:36
they're not fighting each other. They're just wrong. They're wrong, but they're not fighting each other. It's just the algorithm responding the way that it was designed to respond.
Scott Benner 38:47
And using those settings, it makes you it makes you a little too low, it cuts itself off, which makes you too high, it gets aggressive again, which makes you low. And you're saying that if these two settings were more in line with what you actually needed, there'd be this stability where there'd be some insulin, but you wouldn't be taking it away and then adding extra and taking away and adding extra time. Yes. Okay. And that process of take even though the algorithm can keep up with the problem, mostly taking away giving back taking away giving back that is not your goal.
Jeremy 39:19
No, absolutely not. Okay. So we kind of went over what normal mode looks like exercise mode, in my opinion, my opinion, is completely worthless unless you're thinking two hours ahead and what 13 year old looks two hours ahead. The way it works is instead of targeting that 112.5 It will target 150 instead, it will still deliver correction doses if you're predicted to be above 100 ad in the next 30 minutes. It will still increase Basal if predicts the blood glucose to be above 160 In the next 30 minutes. Um will decrease insulin, even if it predicts the BG lower than 160. In the next 30 minutes, it will suspend. If it predicts your blood glucose will be lower than 80 in the next 30 minutes instead of 70, like in normal mode. So, if you know that you're gonna go on a bike ride into hours, then yes, you can turn on exercise mode, and it will protect you. And it's great. If you're running a marathon, you know, an hour and a half, two hours away to turn it on, it works great. But for a lot of parents, they say, Oh, well, it doesn't work. And that's because they turn it on right before their kid gets on the trampoline, and then wonders why Johnny goes low on the trampoline. It's not great for those kids, you know, and those families that are a lot more spontaneous. And you know, I don't know about a lot of people, but like, my kid has a full size trampoline in the backyard, next to a huge 16 foot pool. And yes, he uses them together all summer long.
Scott Benner 41:04
Well, I think that it's funny, because while you're talking about this, I'm relating it to loop in my head. Yeah. And what I'm thinking is that when I see when I look at overnight, what I want to see is that Arden's Basal insulin is not being cut away constantly. And exactly, and that there's no correction, that correction, boluses aren't happening all the time. And I do want to say that things happen, and you want the algorithm to work. But generally speaking away from impacts, like you know, boluses food, you know, hormones, like in just a normal time, which God knows Jeremy, how often do the normal times happen? But in those normal times, you want your settings to just work there where they are, and the result is low and stable. Yes, yeah. And not low low, like normal and stable.
Jeremy 41:58
Yes. And then that moves us into that sleep mode that everybody raves about. So, really quick sleep mode will target a very tight range of 112 and a half to 120. While it's on but not deliver any correction doses whatsoever. It will however, be much more aggressive with increasing and decreasing the Basal. Once again, that's where the insulin sensitivity factor comes into great play. You have to have ISF dialed in immaculately overnight, along with basil. But, Damon normally, he gets down in that. Oh, 85 to 95 range all night long. From one week after starting control IQ I slept every single night. I maybe have one or two nights a month where he has a compression low and an alarm goes off. Other than that, if it wasn't for my sleep apnea, I would sleep all through the night
Scott Benner 43:09
85 to 95. Yeah, yeah. And you're doing that not in sleep mode?
Jeremy 43:15
No, we're doing that in sleep. Right? Excuse me, we're just not in sleep mode. 24/7 like a lot of people do. There's, there's a lot of people that that their life is very dense normally on older type ones, or type ones that have the very, very stringent, stringent routine every single day where everything's the same. We eat the same breakfast, lunch and dinner, we exercise at the same point in time, every single day, there's not a lot of variation, you're able to turn that 20 that sleep mode on 24/7. And if you're these people that have those settings set up just perfectly, there is no reason for control IQ to dump a 60% correction. Right? They do that themselves. They're already so in tune with themselves. Because they've been doing this for so long that they're making although they don't believe
Scott Benner 44:14
that they're making. They're making great Bolus is around food. They're not fast living a lot to begin with.
Jeremy 44:20
Exactly. And so they they benefit from Sleep mode being more aggressive and you know, when they're when they're awake, because they're they're not running away. You know, running 100 yard dash whenever like a 13 year old sees a girl from half a block away.
Scott Benner 44:40
Yeah, right or going from the trampoline to the pool back of the trampoline or something like that. Yes,
Jeremy 44:45
exactly. I say. From there, it's it's a lot of it is understanding Dexcom reports and we're talking about clarity if you don't have clarity downloaded on your phone. Sign into it. There's tons of different reports. And yes, they look intimidating at first. Needless to say, the only thing that matters to me on on Dexcom clarity is that AGP report, it's the very last one, it shows you your average blood sugar at a given time throughout the whole day, then it has a blue bubble around it that shows basically, without getting horrifically nerdy shows you how variable you've been around that average blood sugar. And then from there, it's using those reports to make smart, educated, experienced decisions in a very consistent manner. To get better than average results, you look at the AGP report. And if you start seeing like on a seven day average, you keep raising every single day at 3:20pm. About an hour and a half before that will kick up. You should probably have a Basal segment there. It's about a lot of people will argue over two or three or one Basal segments in a pump. Yeah, my son has nine. Wow. And the reason that he has nine is because that's what he needs. And you look at a GDP report, like I said, I can pull up a 30 day graph and it's straight as can be. And the blue line is very, very close to that red, that red line in the middle. It's I don't want to say it's not rocket science. It's all with time and experience. And staying very consistent and understanding what each thing that you're adding is going to do.
Scott Benner 47:04
I'm pulling up Arden's AGP report right now. So they're gonna ask you a question about it. Because what you said was to make you know, you talked about making smart decisions about changes, but who tells you what those changes are? Like, what what about the report says something to you? And says, you know, go ahead, and, you know, this means do a thing. You know what I mean? Like, like, I have Arden's last. It's interesting, right? I just, it just popped up her last two days. And she's not, she doesn't have any hormonal impact in the last two days, or much less. Her standard deviation cuts in half, when that happens. Yeah, very, very interesting. It's it can go it can be as high as 40. At times, with still an average blood sugar of 110 to 114. Yep, yep. And then as soon as the birth control pill she's on goes to placebo, her deviation goes into the low 20s. Yeah, right away. And that's just,
Jeremy 48:06
and I've dealt with one other young, young, younger female, she was 13, that it was the same way. It just depending on what type of month it was, and we made those adjustments, and we made a different, you know, deal in the in the pump to deal with that time of the month. And we figured out, okay, every month, she needs this much more three days before she's really regular. Let's, you know, treat this the way it should be treated. We know that she's regular, let's be brave. And let's start increasing that insulin the day before, we know we need it. But go ahead and go back to the AGP reports. Let's
Scott Benner 48:49
talk about well, I got my glasses, but I'm, it's hard to count. So I just got old out of nowhere a couple years ago. So I went back and I went to 30 days now. So the last 30 days, the last three weeks, Arden has been trying. So I think everybody who listens knows like we're trying to regulate Ardens period with a birth control pill, it isn't going so great. But so I have her average glucose is 122 over the last 30 days, she has been very low 1.4% of the time, which means under 54, low 6.4% of the time, which means 70 under 70. I don't particularly consider that low, but that's okay. In target and the target of course is you know 70 to 180 for the report I have 80 Yes 83.4% of the time high over 180 10% of the time and very high point 3% of the time. Her coefficient of variation was 33 over the last month and like I said her standard deviation is 40. When you when you get all that involved now, in truth, I don't know I haven't looked back I don't look at CAP clarity as much as I should, to be perfectly honest. So so when I look at this line that I'm seeing, it appears to be incredibly stable. Right around 100 110. For this last 30 days, I see a little bit of an uptick around 2pm that lasts until about six or so. So if she does get higher, she can go 130 or so in that timeframe. And when I do see the 180s, it's in that exact timeframe, four o'clock, four o'clock to eight o'clock. Anyway, I don't know, what do I do with this?
Jeremy 50:36
So I focus on the red line in the middle, okay. And I kind of make sure that I understand that where males are and that there is going to be a spike. But in that 30 Day graphic lease, I normally make adjustments on the seventh day or the 14, but the 30 tells a lot. It tells how long have you had this problem. And if so, if you see on the 30 day graph, a slight uptick because I'm pretty I've seen AGP reports, and I'm like holy hell, and it takes a good month to straighten that red line out like rubber bands, that doesn't mean that they're like that every single day. That just means that your average, that's where your average is I don't care about day to day. Yeah, the median, I care about the average over time, because this is a marathon, not a race. And so if I saw on the 30 day graph, a slight increase at 2pm, I would look at my son's pump. And I would say okay, that basil at 1230, keeping in mind that his lunch is that 1130 At school, I know it's not lunch, that's the basil issue to me. And I would literally go to 1230 an hour and a half before two. And I found that all but one of the kids that I've helped, or one of the families that I've helped every single last one of them, it's been an hour and a half before the before the event on AGP. So I would go to 1230. And I would literally bump him if it's just a slight one, I would literally bumped him five 1000s on his Basal. Okay. And it will, at two o'clock it will hit and point 005 isn't enough to to drive them low. And then the next day, if you look at it, you're like, Okay, it's still there. But if I did another point 005 It would be done. You know, and that's where I go, I don't get so granular that I go by the 1000s. But I do go by the 5000s or the point one, because I can look at a line and be like, okay, that happened yesterday, too. And at that angle, or that delta the change in in blood sugar reading that that angle is going to need a point one instead of a point 005 It you know, you'll you'll get used to it, you'll you'll look at a line, you'll be like okay, that's happened three days now. That's that's going to be a point one instead of a point 005. That's because you're staying consistent. And you know what point 005 does, or you know what point one does?
Scott Benner 53:13
Well, so that's point
Jeremy 53:14
- Sorry,
Scott Benner 53:16
now. So when I'm looking at this, looking at Ardens. Also, the other thing we're doing is it Arden is we're onboarding more and more responsibility to art. And as it gets closer to her leaving for college, a little bit of her practicing. And I think this is her doing a not great job of Pre-Bolus thing as much as she should for her launch.
Jeremy 53:36
So blow your mind. We don't Pre-Bolus at all ever
Scott Benner 53:42
anymore. Because everything's so tight for you. Yes, it doesn't matter.
Jeremy 53:48
It does not matter. Because the other thing that people don't think about it, lots of people do. I'm not saying everybody but a lot of the things that people don't understand is they'll show me a chart. And they'll say, Well, I dosed correctly for this meal. And look, they're still 250 At the end of the day. But if you look at the line when they dosed, they were already climbing. And the thing is, is whenever you Bolus with any pump on the market, any pump on the market whenever you Bolus for a meal, the pump assumes a straight line. If you hit Bolus, Ada carbs and hit enter. It's going to assume it tandem will automatically pull your Dexcom reading into that calculator. And let's say it was 150 it will assume that your blood sugar is 150 and completely steady. It does not take in in this this goes for Omnipod This goes for everything. It assumes a straight line so if you are 150 and you're an arrow up, it's going to a Under Bolus you, if you are 150 arrow down, you it's going to over Bolus you. So that comes back to like, if you look at the meal and you you're having ADA carbs, you're 150. And you're, let's say, arrow, Diag, diagonally up. And you're looking at the Delta and you're like, Okay, so the deltas moving about point six right now, you have to think 30 minutes ahead, so Okay, so 30 minutes ahead. At 630, that's six readings time, that's 30 points more. So you're gonna have to think okay, so I know my son's ISF is 55. So that looks like about an extra point seven units of insulin. So what I'll literally have him do is I'll say, hey, what does your pump say, to give you? And let's say it's, it says, to give him an even for four units just to, you know, throw an easy number out there? I'll tell him, Hey, can you change that to point or 4.7, please, because he's going up, the pump doesn't know he's going up, it assumes he's 150 in a straight line. So you add that extra insulin based on time, you're not going to have the time they won't even spike. It's understanding that that pump isn't going to deliver based on the change of Delta before a meal. And I hope that's not too. too nerdy.
Scott Benner 56:39
No. Are you kidding? That's why you're here. What are you talking about? That's exactly why you're actually I'm also, I didn't realize that in clarity that we had settings before the reports set where I don't care about them. Like, like, I want to me a high blood sugar's 140. That's yeah, that's what I bought them. And that's what I'm looking for.
Jeremy 57:07
Hi, so lots of people don't have that setup. correctly. Now, I understand your idea of a high is 140. And there's a lot of us that, you know, that is how it is. I prefer clarity to be set to 70 to 180. Okay. And I know that, you know, tell me why everybody here everybody hear me out here is Ada standard says 70% and time between 70 and 180. With a SD or a standard deviation of less than 1/3 of the average BG, that is your target. And here's why I use that in clarity to make people understand 72% Of all type ones do not meet that very, very loose standard. And I need people to understand that whenever it's said to somebody to 180, I can say, look, you're 83% in range right now, between 70 and 180. Remember, 73% of all type ones, don't even get that. However, you're doing so much better. Yeah. And if you set it to 140, that's great. If you can get it's like it's 80% in range between 70 and 140. That's more work than I care to do.
Scott Benner 58:30
So I just changed it. And I did it for the last 90 days. And in Target Range 83%. So, you know, so
Jeremy 58:41
right now like Thaman, let's do the 90 days, average glucose of 127. Very low point, one, low 1.3%. In target 91.3, highest 7.4 and very high at 0.6.
Scott Benner 59:02
That's interesting, our, our high and our very high are very similar. And our targets very similar. That's interesting, because
Jeremy 59:08
we don't put up with it. And we look at things before they happen and we take care of them before they happen. It's trusting what you know is going to happen is going to happen. And making sure you do something about it. You know, don't just I mean, control IQ. Like I said no algorithm is perfect. Yeah, if you just think that you're going to turn on control IQ or Omni pod five for that matter, or loop for that matter or any other algorithm and just be able to set it and forget it you're sorely mistaken is not going to work out what control IQ does for me is it provides sleep every night and a reduction in the time that I have to study things and the amount of changes I have to make by a better fold of 90% I still have to do a little bit of lifting care. But that's like I said before that comes with, with time and experience and understanding how insulin works in your or your child's body. And taking things in a very consistent manner. Once you understand how that point, you know, one change in Basil is going to hit and you're accurately able to change basil, or you correct a low blood sugar in a very consistent manner, things become so much easier because you understand what the impact of the insulin or the carbs are going to have. And your outcomes are going to be more precise and better done. Now, this, I know, it sounds like I'm being like, so strict, and everything else I'm not. It's just understanding it. And like, once I understood it, and I got everything dialed in, I do even less work. Because I've done figured it out for my son. And I've done figured it out for these other people that they can just go on cruise control. And we know that that whenever a change in basil needs to happen or a carb ratio change needs to happen. It's not a big deal. Make the small change to make the impact. And let it go. If it happens, again, make that small change again and let it go. It's not a big deal.
Scott Benner 1:01:24
Right. I think I think what you're saying has far reaching implications to not I mean, is the specific situation you are really motivated guy who's incredibly smart and tuned into this. Obviously, listen to a great podcast that got you going and you've just run with absolutely, yeah. I'm joking. But I'm not joking. I think the podcast is terrific. But you know what I'm saying? So, but what I'm going that is that everyone doesn't need to do it at the level that Jeremy's talking about to get the benefit of the of the big picture of what he's talking about. Because I feel like you're I almost feel like I'm hearing my voice come back through you on a lot of a lot of points about you know, stay involved. You know, pay attention. Don't settle for high blood sugars don't over treat low blood sugars like this. Some of those things are just universally true. Yeah, for people.
Jeremy 1:02:21
But when those things happen, whenever you do give too much insulin or you're too bold. Don't let that be afraid. Just that is something that happens. And as long as you say, okay, that happened. Let's move past it and keep going and don't get scared with it. If you over treat a low and he goes in your child goes high. That's okay. That's one high in the time of their life is a marathon not a race. Don't beat yourself up. I see all these parents beating themselves up that. Oh, well, we overcorrected. And now they're high for the next three hours, and I corrected three hours ago. And it's like, Stop, just stop beating yourself up, take care of it, drop it, learn from the situation and move on. Right, your mental health as a caretaker, is just as important as your child's health. Yeah. Do not allow your child's diabetes to take control of your mental status. I mean, I ended up having to go on to Paxil, just to deal with the anxiety. I ended up in the hospital with heart attack like symptoms and ended up being stressed and anxiety. Learn what you can, so you understand what's going on. keep things consistent. So you have consistent outcomes, make small, impactful decisions and drop things that don't work. If it happens one day, it's random. If it happens more than once, change something, don't wait. And then because you get just the third day, it happens, you get frustrated. The fourth day, you start feeling down that you can't take care of your child make the change. And if it's something small, just just try one small thing, and then go okay, that kind of worked. Let's do it a little bit more, and work your way up to being able to do things by yourself, but don't allow this disease to overcome yet.
Scott Benner 1:04:23
Let me let me get some clarity on something you just said. So are you saying that prior to you understanding all of this, the stress was a lot is the stress still there now? No, no,
Jeremy 1:04:33
we live life man. Yeah. So they know everybody. There's some people that say, Oh, your son may not must not be doing anything they do. This kid is more active than most. He's not in any sports. He is. He's a nerd like me. He's in all honors classes. He has straight A's. He's in the National Honor Society. The kid I can't even help him. him with his math homework anymore. The kids smart is the web, but he's still active. He goes for bike rides, he goes, jumps on the trampoline, he wins. He runs around with his brother and sister. He does all types of very active things. He goes to the jump Park. And we do this spontaneously. We don't do it in fear go, oh, well, we're gonna go swimming tomorrow. Oh, God, can't wonder wonder what's going to happen with his blood sugar? No, take extra carbs go in there. Give him some extra cardio before he jumps in the pool. Let them have fun. Let's go. Let's live life. I know it's terrifying. But the thing is that you got to try. And if it doesn't work the first time try again. I think a lot of eventually something's gonna work. Right.
Scott Benner 1:05:44
And I think a lot of the mental comfort that comes eventually is from seeing things happen that you expect. And yeah, yeah, and paying attention to the beginning to these things. Your Basal if you're on it, you know, if you're on an algorithm, even more so for insulin sensitivity, but still on just a regular pump, insulin sensitivity, carb ratios, correction factors, you get those things close even, and things get better. And then once they're close, then you can kind of see them a little better, that it's not so wildly out of tune that you have to guess. I know that all sounds like Yeah, sure. That sounds easy. How do I do that? I mean, you know, I mean, I've talked about it a million times in the podcast, I think the way you do it is by getting your basil right? First, then start worrying about your meals, your ratios, and then start thinking more about different impacts and different foods correction factors from there, etc. Like, you do have to it takes time to get it straight, you're not going to just your doctor is not going to magically set your settings in the right spot. And even if they do, even if they get like a slot machine lucky, you know, the kid's gonna still grow or you're even as an adult or going to gain 10 pounds or lose 10 pounds or start walking more sitting more. And then suddenly those settings aren't right anymore. It takes it takes paying attention. I think one of the most important things you said here's, you know, you got to take a little responsibility and, and put a little effort into it, you know, and not the kind of effort where you're just like I'm trying, I'm trying but like focused effort, that that may lead to
Jeremy 1:07:18
a lot of educating yourself properly. Then understanding what is actually going on inside of your child's body. And understanding what your body, their body, how their body is different than yours. And understand how food digests differently in your body compared to theirs. Do you have a chance to wear a Dexcom? Do it. Scott's done it. I've done it. Lots of parents have done it. Once you understand what it's supposed to look like. It becomes so much easier to do it yourself.
Scott Benner 1:07:54
And it's a little more relaxing to Yes, we see 140 blood sugar for two hours doesn't feel like you've you know, made some pain and full failure. You just realize that that happens to a lot of people. You know, everyday people would fully functioning pancreas is that are working perfectly. Still see elevated blood sugar sometimes. I mean, I had to eat pretty hard to get my blood sugar to 160. But I still was able to do it with a nerf pizza. You know,
Jeremy 1:08:21
I eat like crap. And that was not an issue with me.
Scott Benner 1:08:25
That's interesting. Yeah, I had to eat so much just to hit 161 time. Other than that, I was eating cereal like, like, I don't know if you remember at one point, I took two different kinds of sugared cereal, mix them together in the same bowl and eat them. Yeah, my blood sugar did
Jeremy 1:08:40
I think it was what sugar smacks in Fruity Pebbles,
Scott Benner 1:08:43
hops or something like that. And my blood sugar never even went up. I was almost disappointed by it. I was almost like, oh, you know? But anyway. Geez, Jeremy, this is great. Like, how long do you think it took you to figure all this out put into practice.
Jeremy 1:09:00
Um, slowly over the course of about two years, I was about 80% there over three years. I was like, completely relaxed and like it is what it is. Let's fix it move on. And was able to just look at things a lot smoother. Now there are those families out there though, that have those Alpha moms that I love to death, because whenever they get a hold of me, and I'm like, what do you do for a living and they're like, I'm an accountant. I'm a numbers person. Those people and literally it takes me two weeks to figure them out. Explain what's going on. And they move right on their way and they still have you know, under seven agencies to this day. I was that person. I am a type of person that while I was the kid that took the VCR apart and put it back together and it still worked missing three parts I need to understand what's going on. And I'm just one of those people. And I really dove into it. Especially the biology part of, you know, what happens in what what why is his body so much different than mine? And why is it doing this? And understanding what? The tug of war as you describe it? What can I do on each end of the rope to pull harder, pull less or get it right, you know, that's making small, concise adjustments?
Scott Benner 1:10:38
Well, I'll tell you why we were talking IHS did origins basil. So I look, I looked at that clarity report. And I thought this, like this a one see that I've been okay with, which is her right around a six because she's making more decisions and, and choosing Bolus isn't things like that on her own. Without too much input right now, I thought, Oh, this is a reflection of that she's, I don't know that she's, you know, just kind of finding her stride with it. But then when I looked at that report, I thought, That's not fair. Because I have a lot of stability, away from food, that's still a little higher than I want it to be. So I just changed her basil from 1.1 to 1.2, just to see what would happen. And I'm gonna, I'm gonna watch it over the next day or so and see if I, if I can find some consistency. I mean, we have incredible consistency. But to find it a little lower, would be interesting. And then I think that'll probably help with the food too. That's happening. The food impacts that are happening, like I said, between probably around 132 o'clock, and six, seven o'clock in the afternoon. So I appreciate you making me think about it. So I get busy sometimes to get an amen.
Jeremy 1:11:47
Yeah, and I mean, there are and that's that's just the basis of it. There are other things that I do that are more on the ninja level than then just the standard stuff. I don't expect people do that like stuff like understanding like, my son eats the same food at the same time every morning during the weird weekday. So what I literally do is I will just like, you know, you would I purposely make his basil, a little stronger, about an hour and a half before he eats on a weekday. That's my Pre-Bolus. That is not normal. I don't teach people that. But the thing is, is like I know that at school, his lunches at the same time, every single day, right? And you can't get this kid off of peanut butter and jelly sandwiches with a bag of chips, a Diet Coke, and some strawberries. You just can't get that kid off of that meal. I offer him all different types of things grandma puts in different types of things. It all comes back to peanut butter and jelly sandwich. This is what I want. Maybe he'll have some pistachios one day.
Scott Benner 1:13:02
So you're upping basil as a Pre-Bolus. Knowing that these meals, these exact meals are going to happen over and over again at the same exact Yes. Okay.
Jeremy 1:13:10
Because it's it's it's literally, you know, knowing or expecting, you know, the day I'm saying I'm getting frustrated. Expect what you know is going to happen is going to happen. Oh, okay.
Scott Benner 1:13:24
Yeah, I probably should have come up with a saying that was easier to say there. But well, yeah.
Jeremy 1:13:29
And then, like the only variable I have is after lunch and seeing immediately going to go outside and start chasing girls around, or is he gonna stand and do nothing? Yeah, because Jesus, like, you like the end? I'm like, Dude, why are you dumping? And he's like, Oh, I ran around and chase girls at lunch. I'm like, Dude, if you're gonna do that, cut some carbs out of lunch. If it's 80 carbs covered 50 carbs. I don't think you can chase the girls all day long.
Scott Benner 1:14:03
Jeremy. I don't think he knows till he sees them.
Jeremy 1:14:05
Yeah, exactly. I know.
Scott Benner 1:14:09
That's amazing. I appreciate you doing this very much. Is there anything else that we should be adding to this thing? Because I'm gonna ask you a question. At the end. I just want to make sure you've got out what you want to say.
Jeremy 1:14:22
No, I don't I mean that that's a pretty good understanding of control IQ and how I do and how I teach people to do it. And how we how we adjust things to live a more, I guess, productive life while having great blood sugars, and not having to worry all day about diabetes anymore.
Scott Benner 1:14:50
Okay. So okay, so if I were to come to you, and I'd said Hey, Jeremy, I use control like you by the way you do. Just out of the goodness of your heart you help people.
Jeremy 1:15:02
Yeah. And once again, not an invitation to start messaging me Do not I got four families on my plate right now.
Scott Benner 1:15:11
It's about enough. Jeremy's got a job, you know. So, alright, so Well, that's very kind of you to help people. So if I come to you right now, and I'm like, Hey, Jeremy, listen, I'm on control IQ. But I'm seeing, you know, spikes at mealtimes that aren't correcting for hours at a time. And I'm getting some lows overnight. What do you look at first, you just pull all
Jeremy 1:15:33
I need from them is the seven day AGP report and they're pumped settings. No kidding. And then I maybe ask 20 questions about how what do you normally eat? When do you normally eat? What insulin do you use? Is bedtime consistent on a nightly basis? What kind of activity does your child choose to have? Or that type of thing? Or do they are they on their period yet? If so, is it regular? Just the normal questions that, you know, either your CDE or your Endo? Or
Scott Benner 1:16:14
should probably should be asking.
Jeremy 1:16:16
And if they ask those questions for a very specific reason, because it paints a picture, at least in my head of when I look at that AGP report. What am I actually seen? Am I seeing basil that's way off from a kid that has no activity and eats five or six times a day nonregulated in time and whatnot? Do I have a very protein based diet to have a low carb diet? Personally Thaman he eats whatever the hell he wants whenever he wants. Most I've ever Bolus for in a single meal was 543.
Scott Benner 1:17:03
Wow, 543 carbs.
Jeremy 1:17:05
Yes, you go and look at these dams, and milkshakes at this. This burger shop that's up here. And they're just gigantic. And they're like $17. And they have waffles sticking out of them and everything else and you look at it, you start thinking and you you're like, yep. And then we came to 547 after staring at it for about 15 minutes. And that's what we did. And how
Scott Benner 1:17:29
much insulin was that for him? No. Sorry, about what
Jeremy 1:17:36
it was. His carb ratio was six or 6.5 at the time. Um, let's see here. I can divide by 690 some odd units.
Scott Benner 1:17:51
Wow. Did a 90 unit Bolus? Yeah. And he wasn't low. Nope.
Jeremy 1:17:59
You know, did I have to hit it again about an hour and a half later when I knew the fat was going to kick in? Because I trusted that I knew what was going to happen is going to happen. Yes, I did. Do you think control IQ is going to be able to do that? Or Omnipod? Five or loop or anything? No, it can't you have to be proactive. Do it. override the pump. All pumps can be overrated, whether it has an algorithm or not.
Scott Benner 1:18:23
Yeah. Jeremy, I gotta tell you, if I had if I had a diploma for this podcast, you'd be the first one to get it. That's amazing. I would not have the nerve to give that much. I don't think and I'm pretty ballsy about it. Wow. That's, I'm assuming most of his bosses are not nearly that large. But yeah, but that's a great
Jeremy 1:18:48
example of he sees like 100 car Bolus maybe once every other week. Dinner averages are about 80 to 90 carbs. Lunch is at 90 carbs. Breakfast is 65 Every single day.
Scott Benner 1:19:04
Hey Arlindo had Arden just had a lunch. That was a salad. And then she asked for a bowl of vegetables. She had rice basmati rice, corn, steamed corn and steamed carrots. And it's a pretty big bowl of you know, of vegetables. And I think we bolused I know it was and then we picked 45 for the vegetables which was the carriage the rice and the corn. And then I think the salad was even 20 So she got like 65 carbs for salad and vegetables this afternoon. And her blood sugar still sticking at like 120 so we missed a little bit on
Jeremy 1:19:50
that. That's fine though that that's low glycemic food. Do you understand that? But I mean, you didn't to me you didn't miss? No, it's like it might ramble too. I like the 140 is okay. But I'm sure once you saw that you're like, sticking a little bit. You either let Luke get a little aggressive on the on everything or you told her to take a half a unit.
Scott Benner 1:20:15
Yeah, I told her to add, I told her to have three carbs to our last Bolus, which is something you do in loops that you can't do in, in some of the proprietary algorithms, which I think is if
Jeremy 1:20:27
you can do it in control IQ, you can add carbs to an old but I prefer not to do it, I prefer a straight overwrite, okay, because once again, I know what half of a unit is. Now, if I put three carbs in. If it's been more than one hour, since the last correction, it's also going to correct his blood sugar, it's going to add extra, or it's going to take away extra depending on delta. So I would rather say okay, I'm looking at his line. It's fairly straight. I know I OB says he has two units on board, but it's not real. So I'm going to hit him with point five. Because I know what point five does, right? If I was to put three extra carbs in, it may give him point two, it may give him point seven, it may give him point six depending on which way the arrow is going, which how his blood sugar is going. If he's had a correction in the last hour, not if there's been an auto Bolus in the last hour. Not. There's so much very variability there. I'm not going to deal with that. I know what a half a unit will do. Hit him with a half a unit let him go. I love it. Do we override the pump all day long? Every day? No, no, I don't either. It is so dialed in that you don't have to. But when you do, we do.
Scott Benner 1:21:56
Yeah. Hey, Jeremy, I have to tell you, I I know that after you talk to somebody the first time you probably Converse back and forth with them and text and things like that and takes some days and weeks probably to adjust it right down. I found myself wishing we could record every interaction you had with somebody just to see how it happens. I know we can't but yeah, it. That's the piece that's missing is that somebody like you remind people you work in a motorcycle shop. Is that right?
Jeremy 1:22:25
Yes. I'm the marketing manager of a Harley Davidson dealership. That's I actually well, I'm actually from two dealerships here. In town, we own a sister store. I ride Harley's I own Harley's, I have a beard. I'm you're a typical biker, with the weird ass hair cut. And I swear a lot, I drink Mountain Dew a lot. And I talk about how fat I am all the time,
Scott Benner 1:22:54
and turns yourself into a pretty damn good endocrinologist. So
Jeremy 1:22:58
yeah, I'm not gonna go into our Endo, not gonna say that you're not going to work me into that. But I mean, the other awesome thing is like, I may be all those things, I may be a pancreas to my son and a few other kids and whatnot. But to me, giving back to the community is what really matters. And like, I am also a voting board member and a marketing director for the Montana youth diabetes Association, which is after the ADA camp, left Montana and left all the type ones high and dry. All the volunteers that had been going to that camp for since they were kids said, let's get a camp going and get these kids back to camp in Montana. Very nice. And so we I'm giving back that way I have to, because the community has given so much to me and my son's health, you know, mostly, you know, the podcast and you and everybody in the group that I have to give back some way that I can.
Scott Benner 1:24:09
Yeah, no, I understand feeling like that. I think you're doing amazing stuff to on top of everything else. And I appreciate you coming on here and sharing this with people because there's just no, nobody really tells you what to do. They just give you the thing and then it works out as well as it does and then they call that good and and that's where it stays forever. So
Jeremy 1:24:30
just understanding how the algorithm works and and how it doesn't work and when to step in and when not to step in and it's time and experience and not just sitting on things and doing things and trying things and failing and succeeding and you do something enough eventually it's going to work out. Yeah.
Scott Benner 1:24:54
I agree. All right, Jeremy, I can't thank you enough for doing this man. I really do wish you would have named Good fellows, because when you say his name, that's what I hear anyway. But that's not that's not your problem. It's mine. I'm glad he's doing so well and that you're doing so well. It really is. It's a testament to what I mean what you can accomplish if you get good information and you want to put some effort into it. It really is. Astonishing. You know, I hope you're proud of yourself. Seriously. I try Yeah, no, really, man. It's a it's really something that you've accomplished. So that boy might never know but I know and the people listening now so like I said, I would I would send my first my first ever degree off from the podcast will go to you if I ever make one. Sounds good. Don't look for me to do that. That sounds like a lot of work. But I really I really can't thank you enough for taking the time to do this. Thank you very much.
Jeremy 1:25:51
Not a problem Scott.
Scott Benner 1:26:01
Well, first we want to thank Jeremy for coming back on the show and sharing what he's learned about control IQ. And then we want to thank you s med. And remind you to go to us med.com forward slash juice box or call 888-721-1514 To get your free benefits check. Thanks also goes out to the Contour Next One blood glucose meter. You can find out more and get started right now. You can actually buy one right there at this I know you can buy one at my like contour next one.com forward slash juice box
alright everybody, thank you so much for listening. What else should I tell you? Oh, there are many other episodes about algorithm based pumping. I have a list of them. In fact, let me tell you what they are. Now what the hell we're all here together right? What are you in a big hurry to get back to your job? Let's just listen for another second. Okay, here they are. The first episode I ever done I ever done boy. The first episode the episode. This is going well. The first the first start over. The first episode I ever did about an algorithm was looping it was episode 227 called diabetes concierge. Did one then called a loopy few months episode 252 Then episode three or four loop de loop. Episode Three Tov Fox in the loop house part one episode 313 Fox in the loop house part two, Episode 326. We talked about the mini med 670 G and an episode 420. Fox in the loop house part three. Those are with Kenny Fox, you'll love those. In episode 537. Haley came on she's a tandem pump trainer. In Episode 601, we told the story of how I started looping. In an episode called Gina made me loop. Episode 620 was an exclusive interview with on the pod CEO called exclusive on the pod five interview. And of course today, in Episode 662. Jeremy breaks down how he uses control IQ. We're going to be talking a lot more about these algorithms in the future. So if you're enjoying these, go check out the old ones. And if you just got done with this and thought I'm not get that algorithm to check out the Pro Tip series, and they will definitely help you pump without the algorithm. As a matter of fact, they'll help you pump with the algorithm too. But I'm just trying to find a way to mention some more stuff in the podcast. I think you see what's going on. Alright, thanks again for listening. Your support means everything wonderful ratings and reviews pouring in for the podcast. Downloads and streams are at an all time high. And all of that means that you are sharing the podcast with someone else and for that I cannot thank you enough. It is the most important piece about how the podcast grows.
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