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#665 Type Two Stories: Leanne

Podcast Episodes

The Juicebox Podcast is from the writer of the popular diabetes parenting blog Arden's Day and the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal: Confessions of a Stay-At-Home Dad'. Hosted by Scott Benner, the show features intimate conversations of living and parenting with type I diabetes.

#665 Type Two Stories: Leanne

Scott Benner

Leanne has type 2 diabetes and a daughter with type 1 diabetes.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 665 of the Juicebox Podcast.

Today we're going to be speaking with Leanne. She's an adult living with type two diabetes. And I am genuinely excited to bring you this conversation. I'm going to explain why after the music. But for now, I just need you to remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. We're becoming bold with insulin. If you're a US resident who has type one diabetes, or is the caregiver of someone with type one, I need you to go to T one D exchange.org. Forward slash juicebox and fill out their survey. That's all I need you to do. When you do this, you're going to be supporting people with type one diabetes, you'll be supporting the show and you'll just be doing a good thing. The survey is completely anonymous, HIPAA compliant, and it's not hard. I mean, you take those little buzzfeed quizzes, this is way easier, and it actually helps somebody T one D exchange.org. Forward slash Juicebox.

Podcast this episode of The Juicebox Podcast is sponsored by the Dexcom G six continuous glucose monitor, learn more, and find out if you're eligible for a free 10 day trial@dexcom.com forward slash Juicebox Podcast is also sponsored by Omni pod makers of the Omni pod Dash. And they have a free trial that you also may be eligible for theirs is 30 days long. On the pod.com forward slash juice box, find out if you're eligible for that free 30 day trial of the Omni pod dash. Okay, before we get started, let me just tell you that for a very long time, I've wondered and wondered about how to help people with type two diabetes have witnessed people with type one benefit from community. And from this podcast, from the feeling that they're not alone from others being willing to share what works for them. And it's, it's been life changing for people with type one. I've also seen plenty of entities try to start type two communities. And they never take off. I mean, I'm sure they're lovely for the people that find them. But they never get wide enough to to throw a net that can catch people and bring them in. After I've seen what this podcast has accomplished for type ones and and how far it's traveled. And how willing the listeners have been to share it with doctors and friends and strangers online, anyone who they think it may help. I've come to believe that this is a special group of people. And I think we all know someone who has type two diabetes. So I'm going to start sharing stories of people living with type two diabetes, and I'm going to count on you the listener to try the episode, even though it might not have anything to do with you. Maybe your kid or you have type one and I don't know, I'm just hoping you might you might dive in and and listen and hear these people's stories and, and share them with others. Because I think this is how we build a valuable type to community. And I'm gonna give it a try. So if you're up for helping, check out Leann story today and share it with someone who you know, that has type two diabetes. I'm kicking off this series, which by the way, I'm calling type two stories with Leanne, because she was just delightful, and I had such a great time talking to her. And she shared what her life with type two is like. And there'll be another episode coming up soon with John. And hopefully, if you have type two diabetes, you might hear this and think I'm going to add my voice to that as well. Please reach out if you have type two and you want to be on the show. I want to talk to you. I want to hear everybody's stories. What it's like to live with type two, the confusion, dieting, exercise, what it's like to talk to doctors, friends, family members, the whole thing. I want to weave a generous and A rich tapestry so that others can understand what type two is like and so that people living with type two may find this is my hope that they may find the commonality and the answers that they need to live better with type two.

Leanne 5:19
I'm Leanne. I'm a type two diabetic and when type two cents? Well, I the first time was gestational diabetes in 2006. And then I was diagnosed in 2009. With diabetes.

Scott Benner 5:35
Okay, so you've had type two for like, a dozen years. Yeah. Oh, yeah. All right. So you're definitely a type two?

Leanne 5:43
Yep, definitely. I've been tested. My daughter's type one. So we did all the testing and everything's negative.

Scott Benner 5:52
Okay. When When was your daughter diagnosed with type one?

Leanne 5:56
Um, August of last year?

Scott Benner 5:59
Oh, recently. Yeah. At what age?

Leanne 6:03
1212.

Scott Benner 6:04
Okay. Are you? Are you drowning a puppy? What's going on back there? I just heard

Leanne 6:11
I'm drowning in a puppy.

Scott Benner 6:14
I just know it. Do you have a puppy?

Leanne 6:19
Yeah. My son. My grandson has a little pug for his emotional support animal.

Scott Benner 6:29
Oh, no kidding. That's a That's a? I mean, as long as he doesn't mess up the podcast, I don't care one way or the other. Okay, so how old are you now? Alien? I am 52. Tomorrow. 52. You've had Oh, happy birthday. Thank you. Congratulations. So a dozen years since you're 40 type two, we'll probably get to your daughter at some point. But I want to really start with you. What, how? I guess what, how, what do they say to you when you have diabetes when you're 40? Like what kind of like direction do you get from a doctor is my question.

Leanne 7:10
Well, they, when I was pregnant, they put me on insulin. I went straight to insulin. And then after my daughter was born, they tried the insulin with metformin, and glipizide. All kinds of all kinds of I mean, I've been through the whole rigmarole of pills. I was on a sliding scale of insulin. So I took 10 units with every meal and did just wasn't working. But was it they kept saying they kept saying that I was non compliant.

Scott Benner 7:52
What does that mean? You ate more food than they gave you insulin for or less food and you gave insulin for

Leanne 7:58
it? I guess. I don't know. I did exactly what they said they would say. Now we said to eat, you know, between 60 and 80 carbs per meal. Well, I thought that was kind of a lot. So I wasn't even eating that. I went very, very low carb. I actually did the 500 calorie diet for a while. Wow. I lost 100 pounds. And still insulin resistant, you know. So I, I went through their rollercoaster ride for for 12 years.

Scott Benner 8:39
We ended they call you noncompliant for eating fewer carbs than they asked you to eat.

Leanne 8:44
They just because my blood sugars would stay around 500

Scott Benner 8:49
Oh, okay, so you were eating? Oh, no kidding. So you needed more insulin? Nah,

Leanne 8:56
I needed a lot more.

Scott Benner 8:59
And they were like, just take a little bit of this with your dinner. And then when your blood sugars came back, they just figured you weren't taking the insulin at all. But you are. Right. I understand. Okay,

Leanne 9:07
or the or the pills. So, but I was I was doing everything they told me to do. And they were it was kinda like, they were thinking that I couldn't be doing it because my blood sugar's were still so high.

Scott Benner 9:22
I don't understand why somebody wouldn't believe you if you told them what you were doing.

Leanne 9:27
Oh, I don't know. I guess. They figure you know, type Q if you're really doing these things, and you shouldn't have any problem.

Scott Benner 9:35
Yeah. No, they weren't right about that. Were you just seeing a regular general practitioner? Yes. Okay. Do you still see the same doctor?

Leanne 9:46
No, no, I was diagnosed when I was living in Alaska. I was I was seeing my my, the doctor that my mother saw for her diabetes.

Scott Benner 10:00
Okay. You're Dr. Methuselah Is that who you were saying

Leanne 10:10
you know, we back then we did the best we could we had we had the the intermediate I call it insulin, you know, the cloudy stuff, you got a roll in your hands. We did the best we could with what we had, you know, and there wasn't a whole lot of and there's still not a whole lot of education around it. So

Scott Benner 10:32
no, I know it's one of the reasons I want to talk to some more people with type to to shine a light on the fact that I don't think you guys are given very good information at all, but most of the time, and you said you lost 100 pounds with your with your shifting. And did that change your insulin needs?

Leanne 10:51
No. I'm still a one to four carb ratio.

Scott Benner 10:57
Let us be fair, did you go from 1000 pounds to 900 pounds?

Leanne 11:02
No, no, no, no, no, I, I am about 165. Now Wow. I'm a firefighter EMT.

Scott Benner 11:12
Okay.

Leanne 11:16
homecare aide and I CNA.

Scott Benner 11:18
You're pretty active during the day, then?

Leanne 11:21
I'm very active area. Okay. And I have a little farm.

Scott Benner 11:25
Alright, okay. Let's see, people share your details with me. We're never gonna get the other stuff out. But what do you mean, you have a little farm?

Leanne 11:31
Um, well, we have we have goats and chickens and horses and dogs and cats and lizards. And so I'm constantly repairing fences or feeding animals and mucking stalls, you know? So it's not like I'm sitting on my button lazy all day.

Scott Benner 11:50
I know, you're busy and you're moving. You just, you're just resistant to insulin. Very, and your mother had type two as well? Yes. Okay. My mother, my sister, my grandmother. Was there anything to really? Your mother, your sister, your grandma? So everybody? Is there anything that they did that was successful that you were able to mimic? Or do you guys not even talk about it? Like, how was it discussed?

Leanne 12:16
Um, well, my my mother passed away in 2007. From diabetes from complication of diabetes. Okay,

Scott Benner 12:28
what was the complication?

Leanne 12:30
My sister has kidney disease.

Scott Benner 12:33
What was your mother's complication?

Leanne 12:36
Well, she went blind. She she ended up with kidney cancer. And the treatment for kidney cancer just pretty much wiped her out.

Scott Benner 12:47
Gotcha. And yeah, and now your sister has kidney disease? Uh huh. And this is from her diabetes as well. Yes. Okay. Are they as apt? Were they as active as you are?

Leanne 13:00
No. I don't think anybody in my family so in fact,

Scott Benner 13:08
there's no way to be as active as you are.

Leanne 13:14
Like the Energizer Bunny, man,

Scott Benner 13:16
how would you describe living with type two? Like, I mean, from a perspective of, I think, first your information that you have like, like your set of marching orders, instructions. What is that like?

Leanne 13:33
Well, it's, there's pretty much I mean, all the information that we were given is wrong. If you ask me, it's all wrong. Okay. Oh, how so? Um, when my daughter was diagnosed, I threw out all my pills, I threw out everything. And I started from scratch. Because a light bulb, I was talking to the diabetes specialist, she said, Well, you know more about all this than than I do. And I was like, and that's when a light bulb went off. And it was like, Okay, we're gonna start over. So I I found my, my basil. And then I started working on my insulin carb ratio and my sensitivity factors and from there I went to the doctor and she's like, I don't know what you're doing. But you know, I mean, my a one C went from over 14 down to 5.6.

Scott Benner 14:39
No kidding how and how much time

Leanne 14:43
and five months and this was

Scott Benner 14:45
after you watched your daughter have type one. So what were you watching about the type one that made you think I could be doing this for myself?

Leanne 14:53
Um, well, it just made sense because you know, I know how insulin works and and I knew that I knew a lot more than I thought I knew. Because I was listening to what the doctors were saying, Here, take this here, do it like this, do it like that. But until they started talking carb to insulin ratio and Basal rates, that's when the light bulb went off, and I went, we're doing this all wrong. Because no matter what I do, I'm insulin. You know, I'm,

Scott Benner 15:27
it doesn't feel like you never, you never have enough insulin, and you definitely most assuredly need it. It's not just enough to take a pill. Right, right. So well, how did you learn for your daughter? Like, what was that process like she's diagnosed? And then who teaches you how to take care of her?

Leanne 15:46
Um, nobody. I mean, you're the podcast, I just started listening to the podcast. Oh,

Scott Benner 15:53
okay. I thought maybe you got some, like great information from a doctor and you started using it for yourself. But

Leanne 15:59
no, no, actually, when when I had the meeting with the diabetes educators, she said, Well, you already know everything you need to know, you just need to know how, you know, you need to apply it. Okay. And that's when it dawned on me that, you know, if I'm producing insulin, but I can't use it, what's the difference with her not producing insulin and needing it?

Scott Benner 16:25
Yeah, nothing really. I mean, the the end result is, is that you don't have insulin and you need it.

Leanne 16:30
Right. Right. So I mean, I might not go into ketoacidosis but or have lows without, you know, without insulin, but, you know, she's, she's 12. And she needs insulin. And I thought, I just thought, wow, you know, this makes sense that if I were to treat mine just like I treat hers, maybe we'll get somewhere

Scott Benner 16:57
right. So you were so now are you using a Basal insulin and a mealtime insulin?

Leanne 17:03
I am actually right now looping with the pump with Omni pod.

Scott Benner 17:07
Okay. All right. All right, Leanne. Okay. All right. So you just basically were like, Alright, everyone's got diabetes, minds going terribly. Then she gets it. Was there any fear there? Like when she got it? Where you're like, God, I can't even take care of my own. How am I going to take care of hers?

Leanne 17:28
No, because you know, that Mom Brain kicked in and said, All right, this, this has got to stop. gotcha. I gotcha. So you've got to live a long time now, you know, right, right. When I'm 55?

Scott Benner 17:40
Well, at the very least, yeah. We need you to stay around and stay healthy. When? So, alright, well, how do you find the podcast?

Leanne 17:51
I actually joined another Facebook group. And they somebody in there mentioned it. And so that's where I went.

Scott Benner 18:00
Okay. All right. So you went there. You learned about the show, went and checked out some episodes, watch some people online talking about diabetes, took it back applied it to your daughter, and you were having How long did it take you you just said but I forget the time frame. You got it? You got it down pretty quickly, right?

Leanne 18:19
Yeah. She was diagnosed August 12. And by It was November November 7, my agency was down to I think it was seven. And then in December, or January, actually, I had it down to 5.6. What about hers? Hers went from 12.9 to 6.1.

Scott Benner 18:56
No kidding. In a similar timeframe. Yeah, yeah. Huh. How would you describe your diet? Is it is it still low calorie? Or is it low carb? Is it pretty average?

Leanne 19:13
It's pretty average. I mean, we mostly eat like farm to table type because you know, we're 25 or so miles away from the nearest grocery store. Okay.

But you know, we have we have bread, we have cookies.

We have the normal things. I've never been one to buy a lot of chips and high fat high carb stuff anyway. So, I mean, you know, we go out to eat once a week and we definitely load on carbs then.

Scott Benner 19:48
Gotcha, but you're eating like, like, quite honestly the vegetables, meat. Things that you've raised yourself? Yes. Okay. 25 mile was from a grocery store. I am three miles from 25 grocery stores. I think just I just realized, as you were saying, and I was like, There's no end to how many grocery stores I could get to within a couple of miles. Are you just out in the you're just in a more rural area?

Leanne 20:16
Yes, yes. We live. Like I said, 25 miles out from a small town.

Scott Benner 20:25
So you're not 25 miles away from a big grocery store. You're 25 miles away from just having access to anything? Well, yeah, yeah. Yeah. That's interesting. How do you like living like that? I mean, you were in Alaska prior. Right. So you're used to being rural. But

Leanne 20:43
yeah, but in Alaska, I lived right there in the university. District. I see. I mean, I was right across the street from the hospital in the college.

Scott Benner 20:50
You were more. You were more near things in Alaska. And you are now where you are. Right? Do you enjoy it?

Leanne 20:58
Oh, yeah. Oh, yeah. I don't like to be bothered. I don't like people nowadays.

Scott Benner 21:03
You don't want to be bothered by people? I know what that feels like. Is that scary? Or like, how do you get your insulin?

Leanne 21:13
Um, I drive to town.

Scott Benner 21:16
Somebody's not mailing it to you? No,

Leanne 21:18
no, I drive to town. I don't trust the mail. Because we never know when we're gonna get it.

Scott Benner 21:25
Oh, it's it's not? Oh, I see. Okay. All right. C drive. And then are you in your daughter using the same kind of insulin are using different kinds?

Leanne 21:34
No, we use the same kind I made sure. I tried to keep us on the same dechaine Just so that we don't run out. And it's interchangeable.

Scott Benner 21:41
Yeah, that's a good idea, actually.

Leanne 21:45
So whatever she goes to, I'm gonna go to

Scott Benner 21:48
how were you able to get a doctor to prescribe an insulin pump for you?

Leanne 21:53
Actually, I just called up Omnipod. And I called my doctor and I said, you need to approve this, because this is what I'm doing. And she said, Okay. Once Once I started bringing my a one C down. She was like, whatever you want, and whatever works.

Scott Benner 22:08
Oh, okay. So you showed that you knew what you were doing? And then she kind of got away?

Leanne 22:14
Yep, yep. She's like, she's asking me what, what I need, what I what I want what I need, because she, she doesn't know a whole lot about him.

Scott Benner 22:26
That's something I love that you just, you know, I've I've said before, under my breath, maybe out loud a couple of times, just call the company get a process started. And then just put the pressure on your doctor to just sign off on it. You know, for the people who are like, Oh, my doctor says I have to wait a year, whatever they say.

Leanne 22:44
I wasn't I wasn't about to take any of that. You know, they say that you have to have your blood sugar's under control, before you can do anything. But the way they're, they're giving you the the instructions, you're never going to have it under control like that. You know, I can't take 10 units for five carbs or 10 units for 60 carbs, that makes no sense.

Scott Benner 23:13
So they give you this this goal to get to, and no instructions or tools on how to get to it and then tell you if you get to the goal on your own, then we'll give you the thing you really need. Right? Yeah, and there's no way that's gonna happen. Right? It is an interesting situation. I do wonder what the thought, well, you know, sometimes you wonder what people are thinking you find out they're not thinking anything? Yeah. I was just wondering, like, what the thought process was there for how do you how do you tell somebody, you know, I need you to jump over this wall. And then hide the ladder from them. Tell them the only way, you know, the only way they're allowed to breathe or eat is if they get over the wall? It doesn't it doesn't really make any sense at all. Actually, no, the entire thing doesn't make sense. Because I'm not saying like, I mean, I hear your story. And I'm excited for you that you found something that works. But I'm not even here saying like type two should just always be on insulin or always should be in an insulin pump. I'm saying that there's something that's going to work for everybody could be for some people, it could just be diet and exercise. For some people. It could be, you know, an oral medication and diet and exercise or, you know, maybe some people like you just need the insulin doesn't matter if you lose. I mean, my goodness, you know, almost half your body weight. And right still didn't help you. So, I mean,

Leanne 24:31
they say on the average, if if you're pre diabetic or just diagnosed with diabetes, if you lose on average, 30 pounds, you you'll, you can, quote unquote, reverse it. Well, that's not really true

Scott Benner 24:47
for you. I mean,

Leanne 24:52
even for a lot of people because they're still going to be insulin resistant when they eat carbs. Yeah, so you can eat a low carb diet. I mean, if you don't eat carbs, you won't need insulin.

Scott Benner 25:05
Do you need your basil? From the pump? Whether you're eating or not?

Leanne 25:10
I? Yeah, my basil is running 24/7 How much? Why get like 84 units of basil a day right now?

Scott Benner 25:18
Wow, no kidding. Are you using? Like you 500? Or something like that? Or are you? Nope, no,

Leanne 25:24
I'm using the just the 100 I tried to get the 200 but my insurance is really having a cow. So instead of doing that, I just told my doctor I said, well then just prescribe the Omnipod change every 24 hours.

Scott Benner 25:44
Okay, and you do you put a new pot on every day?

Leanne 25:47
I don't. I try to to cuz I only usually one mill a day. I run on coffee. And, and so I'm averaging about 125 units a day.

Scott Benner 26:04
Okay. All right. So you're making it 1820 hours. Something like that change? Yeah,

Leanne 26:09
I'm making it usually about 36 hours. Thanks.

Scott Benner 26:13
I'm sorry. Yeah, I don't know. I just did the math backwards there. Okay, well, yeah, you know, it's funny for some people were like, Oh, I can't believe I have to change my pump. You know, it won't. It won't last the whole time. Like it, it lasts as long as it lasts. You still don't have to give injections during all that time, right? And you still get the benefit of the pump running your basil. And it's a right. It's you don't even see that as a problem. Right? You just see that as what needs to be.

Leanne 26:38
Right. You know, and I like, you know, because I'm looping you know, it'll self adjust. So if my insulin needs go down, my pumps gonna fix it.

Scott Benner 26:48
No kidding. Are you on the auto Bolus branch are on the way on the pizza branch that does the by basil.

Leanne 26:58
I have the auto Bolus branch too. Okay, or whatever that is. That's great. I have the option. I was doing it for a while.

Scott Benner 27:07
Did you not need it? Do you not need the auto ball thing?

Leanne 27:11
I'm not usually I work. It works pretty good. Like right now I'm running it, you know, 89 I run? I don't get over 120 anymore ever. Unless I'm really stressed or something

Scott Benner 27:26
really stressful. You mean? Like, like a sheep ran away or something like that?

Leanne 27:32
Like, like, a teenager. So you got kids together? And I'm biting my tongue really?

Scott Benner 27:40
Well, yeah. Listen, if you're gonna tell me you live on a small farm, and you expect me to make fun of Canadians when they come on, then I gotta get what I mean, I gotta equal time. How do you feel versus how you felt prior has had any impact on your just your day to day life and energy in

Leanne 28:01
tons? I mean, before if I if I was to play in my house, I might have to lay down and sleep for two days. You know, I my whole body ache all the time. And once I, once I got the insulin and mean that my body needed, man, I have energy that just won't quit.

Scott Benner 28:24
Good for you. No, I cursed. I didn't mean to charge. I'm so I'm so thrilled because, you know, I don't know if it comes to surprise to you or not. But it's incredibly difficult for me to get type twos to come on the podcast. Like it is not easy. I try and I try and there's just not many of them that are willing to do it. And I think it's because, well, why do you think it is?

Leanne 28:50
I think it's because there's such a stigma. And they're, they're so used to everybody judging.

Scott Benner 28:55
Oh, gotcha. Okay. I always thought it was because they don't know what to talk about. Because I don't think anybody understands their time, too. Well, maybe, you know,

Leanne 29:04
the question is, do they have good control? I mean, or are they kind of floundering out there? You know, I mean, I see. Well, I was just responding to a post on your, your page. And it's so many people just don't know what to do. I know, because they've been given bad information,

Scott Benner 29:27
or no information, or none. Yeah, I just interviewed a guy the other day. I don't know when it'll come out. But it was interviewed or interviewed. He was diagnosed as a kid like in his teens and just no one to help them. You know, and he lived for so many years, not even understanding the simplest things about his diabetes and had a real horrible impact on his life and

Leanne 29:48
right, I was fortunate that even with my blood sugar's up between three and 500. I don't have any long term effects. My kidneys are good. I don't have any neuropathy. I was starting to get around 50. And then it went away when my insulin got adjusted,

Scott Benner 30:06
we ended your daughter getting type one diabetes kind of save your life.

Leanne 30:11
I think so. Yeah, that's I tell her all the time. And she's like, well, we're buddies now. And I said, in more ways than ever to are all the time. You know, you you if it hadn't been for you being diagnosed that I don't think I would have, everything would have clicked,

Scott Benner 30:27
right. Yeah, don't give her too much power, though. It'll go to her head, but I hear what you're saying. Like, that's gonna be like, I did save your life. I'm like cleaning my room. Well, that's it's so the really super interesting thing about talking to you is, is it there's no discernible difference between your story and a type one story.

Leanne 30:50
Right, other than I know, you know, like I said, we I won't go into keto acidosis. But

Scott Benner 30:57
sure, yeah, your body's gonna hold off a little, like, hold it down to some degree. Right. And if you stop eating your blood sugar comes back down ish. Eventually, I imagine

Leanne 31:07
is I so what I had to do, I mean, even on my basil, you know, I was on she had me on like, 30 units a basil. I was still running over 300. So I started titrating, my basil up until my blood sugars in the morning, were under 150. Okay, and I, I left it there for a little bit. And then I went down under 100. And I left it there for a little bit that I went down to about Ed.

Scott Benner 31:41
Lee, and you and I Jive right. You get me, don't you? Yeah, I could tell you. What's your total Basal for a day? Because I have a guess at 484. Wow, that is, but it must have taken some real nerve to get to that number. Hmm. Like you must say, You're a little ballsy doing that is what I'm saying? Like that's, well, it's well, no,

Leanne 32:06
no, I wasn't. I wasn't dropping low. So let's go another new unit.

Scott Benner 32:12
Go another unit. Do another five. Do it again, boys. So you're like three and a half an hour? Ish around there?

Leanne 32:21
Yep. Sometimes even more. I mean, it just kind of depends. You know how loop works?

Scott Benner 32:27
Right, right. Yeah, yeah. Sometimes you'll see a checkup right? Does it ever go away? Like you ever see it take your basil away

Leanne 32:35
for maybe 10 or 15 minutes, but not for very long, just looking

Scott Benner 32:39
for balance? It doesn't care. Right? You never look like you're getting low to the algorithm.

Leanne 32:44
See, like right now? I'm running 90 And my basil is 5.1.

Scott Benner 32:51
Thank you. And your basil is 5.1. Gotcha. So it's seeing you try to go up and it's being aggressive with your basil holding you down? Yep. And do you see any difference between how you manage yourself and how you manage your daughter?

If you're using insulin, you might want an insulin pump. If you might want an insulin pump, you definitely might want the Omni pod. How do you know? Well, you could try it with the free 30 day trial of the Omni pod dash. Find out right now if you're eligible at Omni pod.com, forward slash juicebox. Now that I've been sure to tell you about the 30 day trial, I want to tell you some more things about the Omni pod. Like it's tubeless. You can swim with it, shower with it, jump in a lake with it, jump up and down with it. It's not connected to any tubing or any devices. Understand I'm saying every other insulin pump that you can buy has a tube that comes off it seems like it's inserted into your body in the infusion set. These are the other ones I'm talking about. And then tubing, tubing could be a foot long, two feet long, three feet long lot of tubing, you're hiding in your clothes, etc. And then it's connected to the insulin pump. And then that's where the insulin goes. You pick that up to push buttons on and and stuff like that you clip that on your belt or stick it in your bra. You see what could be happening here on the pod, not like that at all. On the pod is a little pod. It has everything you need inside of it. When you need to talk to it. You have a handheld controller that is not attached to it. It works through the magic, whatever, you know, technology like you can touch something like a remote control and then on the other like your TV moves. Same thing with the Omni pod. Do you pick up the PDM the personal diabetes manager you tell it like I'm having 43 carbs PDM push button, and it's not magic. It's technology but it doesn't make a big sound but I think you're following along with what I'm saying where Getting a little far away from the point now, the only pod is not attached to anything, right? It's just the pod that you wear, nothing else is attached to you. And you don't have to take it off to swim, or do any of the other things that you might have to remove these two pumps for that or stand like adults, you know what I'm talking about, right? Yep, and other things like that, for instance, soccer, head over now to Omni pod.com forward slash use box and see if you're eligible for that free 30 day trial of the Omni pod Dash. And while you're in the mood to be on the internet, and get stuff for free, how about a free 10 day trial of the Dexcom G six continuous glucose monitor, because you may be eligible for that as well, you know, where you would find out about that at my link dexcom.com forward slash juice box by the way, the links to the sponsors and all the sponsors are at juicebox podcast.com. And right there in the podcast player. There's like little shownotes right there in the podcast player that you're listening in. If you can't remember dexcom.com forward slash juice box, which I think you probably could remember, but I digress. The Dexcom G six, it does some good stuff baby. It shows you your blood sugar in the real time on your phone. I am picking up my phone now and swiping up. And I am going to tell you that are this blood sugar is 132. She has a little bit of a rise from a late night snack. It seems steady like it's not going to come down. And in a minute, I'm going to talk to her about maybe making another Bolus, not only can I see Arden's blood sugar, but up to nine other people could at our house, it's just my wife and I. But you might want your aunt to also look or your boyfriend, your girlfriend, your school nurses, somebody like that anyway, you can choose up to 10 people to see your diabetes data if you want them to see it. And if you don't want them to say it, you don't have to show it to anybody. Dexcom also has alarms that you set to tell you when you are rising or falling, or hitting a threshold that you want to know about for us. We get an alarm when my daughter gets to 70 and 120. You could make your settings, whatever you like. Maybe you heard that and think oh, that's a good safety precaution. You'd be right. Or maybe you heard that and thought I probably could do better with my insulin. If I knew when I was rising and falling. I think you'd be right about that as well. There are a ton of ways to use the Dexcom G six in your favor. And you're only going to find out about them when you go to dexcom.com forward slash juice box and start to look into it. Honestly, the Dexcom and the Omni pod are great devices for anyone using insulin. I hope you check them out using my links for full safety risk information and free trial terms and conditions for the Omni pod. You can visit omnipod.com forward slash juicebox. Alright, now let's get back to Leanne. No, it doesn't seem different to you know,

Leanne 37:58
I just jacked her basil up to where she's

Scott Benner 38:01
getting to that age ranges, periods and things like that are probably here. She's

Leanne 38:05
getting ready. And I can tell because her blood sugars are creeping up for no reason. So I was like, oh,

Scott Benner 38:12
no, you're not gonna have any trouble with that. That'll look like a joke to you. You'll be like, ah, let's turn this up a little bit here. We'll be all set. Just you know her Basil is not going to go up to three, right? I mean, probably.

Leanne 38:26
Well, um, let me see. I got her follow right here. So she she's right now 1.5 But just a little bit ago she was at like, 2.8

Scott Benner 38:38
No kidding. So she's she's running the algorithm as well. Yep. Oh, yeah. Guys are kicking ass was excellent.

Leanne 38:50
I was the guinea pig. I started I got the the the Omnipod I had, I hadn't vote for her and for me within six weeks. Because I wasn't taking no for an answer. Right. And her endocrinologist is like, whatever you want, because I think you know what you're doing. And I said, cuz she was in honeymoon and they wouldn't. They don't usually like people to have the pumps in honeymoon. And I said, okay, so she's got a one to 250 carb ratio. Give me the dang pump so that I can give her micro doses and keep her blood sugar's lower. Yeah. And so they did. And so I tried it on me first I started the November 2 pumping. And I started her on the 10th

Scott Benner 39:44
we can you figure this all out in a very short amount of time. Seriously, it's wonderful. It really is helpful to be able to practice on yourself you think?

Leanne 39:54
Oh, yeah, yeah. Oh, yeah.

Scott Benner 39:56
Take away yeah.

Leanne 39:56
I played around with it. I have a couple of pretty good lows before I. Okay, we know what that does

Scott Benner 40:08
what's that to ever see Apollo 13 when he puts this piece of tape over top of a switch and just says no on it have you get vented the capsule of its air or something like that they were getting a little squirrely at the end. And and I don't know if any of that's historically accurate. But Lovell looks at the guy and he's like, what's that for? And he's like, you know, just in case. You know what switches not to throw anymore? I'm, I'm listened to we don't know each other. And you're an adult. I know, you might be older than me. And I have no idea, I guess. But I'm incredibly proud of you. This is was really wonderful. I mean, I'm, I'm loving hearing this.

Leanne 40:49
Yeah. So I you know, I like with my daughter. I don't mind, you know, and I see a lot of people Oh, my goodness, they're under 100. At night, what do I do? I don't I let my my daughter coast at 7580. As long as she's steady. She's good.

Scott Benner 41:07
Yarden had a great overnight last night. It was super steady. And she was the she was kicking us all night long. Actually, just, I mean, she tried to get a little low around 330 Maybe. But the algorithm got in the way of that. And that was coming down from a correction. To be honest, she had a correction at like midnight. And it took about three and a half hours before it was a little too much. And then a DA it was able to catch it. So I mean, I agree with you, I think steady is steady and steady at any number is, you know, is good. If you're not going to drop then I'd like to be as close to normal as possible. Right? You know? Wow, I don't even think there's much to say to you. You just you're like you just took the podcast. Like I'll do all this. Don't worry. I did it. Now we're done. Let's get back to fixing the fence.

Leanne 42:08
Well, let's rock and roll. If you're gonna do something you might as well go balls in right?

Scott Benner 42:11
Why not? Did you try telling you to try telling your sister about this?

Leanne 42:16
I did. And actually she she told me she was in. I think it was stage two or three kidney disease and I said okay, she said, well, good doctor said she doesn't think it's reversible. I said, All right. This is what you're gonna do. You're gonna you're gonna stop screwing around. Oh, watch my mouth. You're gonna you're gonna stop screwing around

Scott Benner 42:39
where you keep going. Before you keep going. I want to point out that scurrying around seemed like a watch your mouth but balls deep. You were okay with.

Leanne 42:48
Wow, I wasn't gonna say I wasn't gonna say screw it.

Scott Benner 42:53
I love your line. Your line is very jagged. I'm enjoying it. I'm sorry. You said to your sister.

Leanne 43:00
So I I told her she needed to get back into her diabetes specialist and insist that they help her find a insulin to carb ratio. And a good Basal because she was on five different insolence.

Scott Benner 43:19
Really? Like, yeah, trying different stuff she was she was using multiple kinds of insulin at the same time.

Leanne 43:27
She was using like, the weekly one. The ones daily one, then her long acting. And then it was just it was crazy.

Scott Benner 43:38
Sounds like your doctor did not know what to do at all. Just kept throwing things at her. Okay?

Leanne 43:43
She's got her blood sugar's down to right around 130. That's great now, but you know, getting her to listen to a podcast or listen to me very well was kind of hard.

Scott Benner 43:58
Did you tell her I was lovely, and that she would enjoy it?

Leanne 44:03
He's just I don't know, you know, when she's when she's ready to take control? I guess she will. But you know, I'm not here to push anything on anybody? And

Scott Benner 44:11
of course not. No, no, I'm not saying you should. I'm also, you know, it's just interesting. I'm not saying you're gonna reverse her kidney disease. But I mean, even does slow things down or worse, you know, stop progression would be a big deal.

Leanne 44:25
Yeah, well, you know, my dad had my stepdad, he had diabetes, and he was on dialysis. And I took care of him till he passed away too. It's it's hard to watch somebody go down that path.

Scott Benner 44:41
Yeah, that sounds like you might stop the stop the circle in your family. I mean, at least in your in your immediate family. I'm really hoping Yeah, we were all not alive just to grow up and help somebody else die and then to be put in that situation for the next person. You know, like it would be nice stiff and not unreasonable for people to live healthy lives and, and finish up, you know, somewhat reasonably. You know what I mean? Like, like, like, like you're meant to be like in a car accident or something like that. I'm just kidding. Like, you know, like, you know, old on you're,

Leanne 45:19
I'm envisioning, you know,

Scott Benner 45:23
I've just, this is my, this is my luck, I get myself together one way, and then a rock would just fall on my head. But, but No, but seriously, like, we you know, people deserve a shot at a longer healthy life, your you know, your, your end, yours shouldn't be, you know, helping someone else to pass gracefully, knowing that you're about to ask another person to do that for you. And, you know, it's just terrible.

Leanne 45:49
Yeah, well, you know, those in my family that have had diabetes, with the exception of my uncle, I guess I just found out my uncle had type one. All I knew as a kid is he had this packet, this cool little case that he kept all his insulin and stuff in. But I just recently found out it was type one, because I was like, Whoa, you know, no kidding. And then he lived to be like, 84, but my, my grandmother, my mother, nun, or, you know, my mother passed away at 66. And my grandmother was 72. But she had just gotten diabetes. Not too long. He was like, in her 60s,

Scott Benner 46:38
right. So yeah, that's too young. I mean, maybe back then, maybe a couple of generations ago, certainly my grandmother died at 73. It's funny, though, like, I don't know about for you. But like, I look at a picture of myself at my age now. And a picture of Mike my father at 50. And he looks 75 to me when he was 50. And my grandmother passed at 72 or 73. And I mean, in my, in my mind's eye, she was much older. Right? So I know, there's a little bit of benefit that goes on, she also worked much harder than I am ever going to work. You know, she grew up on a farm. And, and, you know, she had a different life. My father worked in a in a factory. I didn't have to do that for very long. I got out of there in my early 20s. So but still, like I get the idea. It's just, I don't know, like, it just, it just seems it seems reasonable, that you should have been able to take these experiences that your extended family had learned something from it and improve, right? Like, that doesn't sound crazy to do and you did it. Like, it's wonderful. I would hope. For me, it sounds like that to me, do you? Do you feel like it's going that way?

Leanne 47:49
I do. Because, you know, like I said, I had a pretty good understanding of how insulin worked. But the way they were telling me to use it, just never, it never worked. It never worked for

Scott Benner 48:05
me because you weren't using enough. Right, right. Because

Leanne 48:09
like I said, I have a one to four carb ratio. And sometimes it's one to two.

Scott Benner 48:17
Really, and but you don't know you won't know when or it just kind of pops up and happens to you.

Leanne 48:23
Yeah. So And in that instance, you know, I watch it on the loop and I say, Oh, well, we're gonna crush that before it gets out of hand.

Scott Benner 48:33
Are you? Are you running? Are you running your your your diabetes? Like a video game? Pretty much I am. Yeah. Score. I have talked to a couple of people recently who seem to put it oh, it seemed to put it in that situation to give me a second, please. I think Ardens Oh, wait, I got I got a hold of her. She's in the shower. Maybe her blood sugar just dipped down. And I was I was texting her for last couple of minutes. She wasn't answering me but she just answered me now. So we're good.

Leanne 49:05
That's funny. My daughter and I both when we when we take a hot shower, we go up.

Scott Benner 49:11
Yeah, I hear it from everybody. You know, you've heard me talk to Jenny about it. And Jenny's like showers don't affect people's blood sugar. Like she's just like it's I think it's different for different people. Like you just

Leanne 49:21
Yeah, yeah. Ours goes up and then our foot on the floor is we both dropped.

Scott Benner 49:26
No kidding. You wake up in the morning and get lower.

Leanne 49:29
Yep. I'll wake up you know. In the 70s and by the time I get my feet down on the floor, I'm my alarms are going

Scott Benner 49:41
what happens to bedtime? We lay down in bed do you get higher or lower when you lay down? Nothing. Nothing happens at bedtime. Okay,

Leanne 49:48
I just stay pretty steady all night.

Scott Benner 49:51
Gotcha. That's interesting with a whole

Leanne 49:54
my daughter. My daughter sometimes will go a little higher but you know a lot of hers are Right now or I'm pretty sure home hormones. I'm dreading the day but you know,

Scott Benner 50:06
oh, you know, stop it. So tell me a little bit about her being diagnosed. What did you notice first?

Leanne 50:16
I noticed the frequent urination. And I called up her pediatrician and I said I need to have her tested for diabetes. And she said, I'll bring her in. We'll just she's probably got a UTI. I said, I'm telling you it's not a UTI. There's too much urine. And too often. So we went in, they tested her for a UTI, nothing but they found ketones. And then they did a blood sugar and an A one C. And I knew where I did. So on the way home, I stopped changing my plans for dinner because we were going to have more carbs for dinner and it a low carb dinner because she her blood sugars are like 279 At that point, but her a once he was 12.9. So I was like, and she had ketones. So I was like, Ah, so I fed her low carb that night. And they call me back in the next morning and said get her to the hospital.

Scott Benner 51:16
Hold on one second formula, and this never happens. What's up? Yeah, go ahead. Well, you need to go take care of that. Right now. Hold on one second. Leanne. Can you give them five minutes and I'll be right back? Yep, I'm gonna stop the recording. So feel free to poke your nose. Nobody will now Okay, again. I'm sorry. I'm back. So, this is so embarrassing. I'm just going to tell you. Things don't usually go like this around here. But Arden you know, her blood sugar was getting a little low. So at first I was just texting or anything like, hey, you know, you need a juice. And she taps on the door, and she's wrapped in a towel. her girlfriends and her are going to dinner tonight. And she's trying to get ready. And she's drinking a juice. He looks fine. I'm like, what's wrong? I'm recording. I'm pointing to my ears as if she can't see the giant headphones on me. And she goes, where's mom? I'm like, I don't know. I made your mouth 25 years ago, like she just stopped telling me where she was gone quite some time ago. I like sound like and so I'm like what's so I finally said the she clearly whatever was bothering her. She wasn't gonna walk away. And I, I uncover my ear. And I'm like, what's happening? And she's like, the dog had an accident downstairs. Which by the way, never happens. Like I mean, just like never happens. And I'm like, we'll go take care of it. She goes, and she's looking at me holding a juice box wrapped in a towel. She's like, I can't and I'm like, All right, I'll go do it. So like I'm downstairs like an all I can think of is like Leanne's talking about mucking the stalls. I'm like mucking my dining room. You know what I mean? Like, oh my God. Oh, I love it. Like if it was hard, it was hard. I would have been back three minutes sooner, but I was like, I've got to sculpt my hands with hot water and soap before I go back upstairs. Anyway, I apologize. That does not normally happen.

Leanne 53:22
It's quite alright. Usually walk. We understand those kinds of emergency. I was

Scott Benner 53:26
gonna say like, perfect day for this because cuz you're gonna just be like, that's fine. I don't mind. It's everybody else would be like, what happened? Like? And anyway, and I don't know what dog it was. So there's two dogs. So now I'm not sure which one's not feeling well, but it's one of them. Oh, no.

Leanne 53:43
Oh, I'm sure you'll find out soon. No, oh,

Scott Benner 53:47
sure. To joy, children, dogs. They're all great decisions I've made as an adult. Anyway, so I was trying to cheeses. So let me try to get back on track here. Your your daughter's diagnosis is like kind of like the the point where I'm interested. So she's when she's diagnosed. You're not getting much information for her either, right? Like it's just sort of like your MDI at that point. Does anybody have a CGM? Has anybody ever mentioned a CGM to you or anything?

Leanne 54:20
No. Well, she was she was prescribed the CGM before we left hospital. When I talked to the diabetes specialist, actually, she was asking me questions and I'm answering her everything, you know, that I've known. And she says, Are you looking for a job? I said, Well, I don't think I have the qualifications to be an diabetes education specialists. And but she she did say that they were opening up a new clinic closer to where I was, and and I should really consider it

Scott Benner 54:58
rolling.

Leanne 55:02
But yeah, but yeah, my diabetes is totally unmanaged.

Scott Benner 55:06
You're standing there right now, you know, you know, basically, boy, this is an insight, isn't it? You basically know about 10 words, because you have type two diabetes, and she's like, you'd be a great person to help people around here. Right? Well, that's a, that's a sign.

Leanne 55:22
Well, I was explaining when, when the doctor walked in, I was explaining a onesies to my daughter. Because you know, I know that. And I was I was even drawn it on the board, write it on the board. And I said, if you have an A one C of 12.9, this means your blood sugar's are Everdeen. You know? And if you want to get under a, I said, Well, what I said was, you want to be around a six, then you need to get your blood sugar's here, and he says, actually, we want him at seven. And I looked at him like, Have you lost your cotton picking mind?

Scott Benner 55:55
Well, yeah, it's, it's interesting. So you knew that much. But what was your agency at that time? Like 11 something right?

Leanne 56:02
Um, no, mine was actually like, well, I don't know it at right then. I'm not sure what it was. But I had fluctuated. The lowest I've ever gotten in, in probably 10 years was a seven. Okay. And I knew how I felt at seven. I still felt like crap,

Scott Benner 56:25
right? How did you get to the seven? Was that just good luck? Was that or is that a lot of restrictive eating?

Leanne 56:30
That was a lot of restricted eating a lot. I mean, I did the HCG Diet For goodness sake, what is that? Ah, what are you inject yourself with pregnancy hormones and only 500 calories a day with no carbs?

Scott Benner 56:45
We and who the hell are you? Wait a second.

Leanne 56:50
I was trying. I was desperate. How did you? You know, low carb and restrictive diet? I lost 100 pounds.

Scott Benner 56:59
But how did you get a hold of? Who are you by this? Oh, you don't even want to know. Really? So okay, but let's be serious, because I see you're out there. Like on some sort of a black market, trying to say trying to save your own life somehow. Right? Yeah. Okay.

Leanne 57:19
Well, I guess you know, my husband and I, we've got six kids. And he passed away when my youngest when my daughter that has type one was five months old.

Scott Benner 57:29
I was gonna say he passed away when he realized he was gonna have to pay for six kids. That's what I would have gotten.

Leanne 57:35
Probably. Okay. And then and then I adopted two kids and I have custody of another one. Plus, I have custody of my two grandsons. So

Scott Benner 57:46
we hold on 678. Is that 1011 11? Did I lose count while you're talking?

Leanne 57:56
So I got six. Adopted to see. I have custody of my my cousin's child. oh nine and then the two grandchildren. And then my two grandchildren.

Scott Benner 58:08
No kidding. What state do you live in? Can I ask this question? Washington? Washington State? Yep.

Leanne 58:16
I'm in Washington now. Okay. All right.

Scott Benner 58:19
You in the 11 kids, the 17 dogs, the lizard and all the other stuff?

Leanne 58:23
Right? Well, well, most of my kids are grown. So

Scott Benner 58:27
it was nice to them believe. Yeah. Do you? Do you have like a line on the wall where you're like, listen, when you're this old, you gotta get the hell out.

Leanne 58:37
I just I just said, my 18 year old is attending UAA. And then I have a I have a 15 year old. My 12 year old my 11 year old grand fun. my eight year old she's my daughter and my six year old grandson.

Scott Benner 59:08
Are there any other medical issues with all those kids?

Leanne 59:12
No, but I do have I'm gonna get I have the trail net that I'm gonna do for them because my my cousin's child, my aunt, her grandmother had type one diabetes, but she's not blood related to me. So

Scott Benner 59:27
I'm just gonna check to get those kids through me by any chance.

Leanne 59:32
Um, I did

Scott Benner 59:34
send them back and I get credit for when you send

Leanne 59:38
them back in. I get everything through you. I do the I do the surveys through you.

Scott Benner 59:42
I appreciate it. But I mean, you know, we're joking around. I'm having a lot of fun here but I basically like I was a huge help to you, right?

Leanne 59:50
Yes, yes. So any any way I can repay that? That's what I'm gonna do.

Scott Benner 59:55
Send me a guinea pig. I'm kidding. Do not send me a live animal.

Leanne 1:00:00
Well, you know, I got a funny story about guinea pigs but you probably don't want to hear.

Scott Benner 1:00:05
I don't know yet. I might be up for anything you say you don't know. Don't sell yourself short. You've said a lot here. I've been intrigued by every second of it so far, so don't don't sell yourself short, please. Okay, so you see, you're managing her. They they're saying a seven for her. And you're saying no, I know that needs to be lower. But then you go home, they do give you a Dexcom going out the door.

Leanne 1:00:36
Well, well, we went on vacation the day after I said, you know, they released us on on Sunday, but they wanted us to stay till Tuesday for the day the education and I said oh, no, no, we're going on vacation on Monday morning.

Scott Benner 1:00:52
She just with the education are not what you take with you. Needles. vials. Yep,

Leanne 1:00:58
I took I took pins and extra needles and a vial and here we go. Blood your blood testing kit.

Scott Benner 1:01:08
And you just went where do you go on vacation?

Leanne 1:01:11
We went to Silverwood amusement park

Scott Benner 1:01:14
to an amusement park. Sounds fun. In Idaho. There's an amusement park. See? There you go. Now you surprise me now you got my east coast. snobby? Miss out of me. I was like there's an amusement park in Idaho. Why would there be an amusement meanwhile? Why would there not be but Idaho so that's a bit of a trip. Did you drive that? Yep. Nice. All those kids. You put them into a horse trailer with all the kids. Where do they go in the car? Car Are they like rolled up in a carpet on the roof? Or how do you how do you handle that?

Leanne 1:01:48
I threatened a couple of them to be ornaments on the hood. But we we broke out on the side of the highway and I had to repair my alternator right there. We got it. We got to write in the on the back of a big old tow truck. It was a fun adventure.

Scott Benner 1:02:07
I bet you it was I'm not looking at pictures of silver woods. Or silver one. Look at that. It's an art. It's cool. There's trees around it and mountains. Yep, yeah, I we

Leanne 1:02:18
we ran into we went through the b&b and we rented a campsite with a tent and everything.

Scott Benner 1:02:26
That sounds like fun. And how did your daughter do? Being diagnosed? Was it stressful on her? Or did she kind of roll with it?

Leanne 1:02:36
As she just rolled with it? She said? She said Well, no, I'm kinda like you so well. Kinda. Yeah. She says, Well, you got me. I got this.

Scott Benner 1:02:47
Just like she trusted you. Oh, yeah. I bet you that felt like a lot of pressure. Because you were like, kid, I can't even take care of my own diabetes.

Leanne 1:02:57
Like, I was I was hell bent on on taking care of hers correctly, though. You know, I mean, I understand. Oh, and that's when I realized. I mean, I realized right away. I had been struggling with mine for so many years that I was about to give up. Just flat give up. Um, on management, and then I don't know, when they said she has type one. I went ding Yeah.

Scott Benner 1:03:27
I like given up quite Yeah. Well, listen, you should never give up. You're raising 11 Children, 53 animals. You're, you're a widow, and you can fix an alternator on the side of the road. I think I don't think you should ever give up to be perfectly honest. You might be the last person left when this whole thing goes to hell. They just, I mean, really, you You sound very capable. And I mean, if this doesn't prove it to you, I wouldn't know what would I would think just raising those kids would make you think you could do anything but

Leanne 1:03:59
well, well. I mean, not not like give up in life. I mean, but I was just Yeah, no, I understand. I think that there was no no treatment for me. That was gonna work because I've tried everything. Yeah. I'm not a big pill popper,

Scott Benner 1:04:16
though. The idea that just there's no answer. Like, this might just be my reality. Right? Yeah, I've got that kind of diabetes.

Leanne 1:04:24
Yeah. And I was, you know, thinking back you know, you reflect back on your mom and your your stepdad and you see the crap that they went through. And it's like, oh, I don't want to do that.

Scott Benner 1:04:35
No, I mean, your mom lost her sight. Your sister's kidneys are going like there's there's plenty for you to be scared of, you know? Yeah. Is there any chance one of those 11 kids will name a kid Scott? Can I just throw that out there now like tried to get a like you said you do anything. I don't really need you to do much. But I would take a name child or horse. Horse. I don't know we might be able to convince one. Yeah, no, no. That's probably not gonna happen. They're gonna have their own problems in life and then probably name it Benner. You think I'll take that? That'd be a cool name. Oh, cool. We'll roll with that, then I'll take. I think it's, interestingly enough, because I'm adopted. And my one brother has two stepchildren, but none of his own. And my other brother has a daughter. The I think the bloodline stops with me. My dad had a brother who didn't have kids, and he had a sister, so I'm right. Right. Like, I'm like that. Yeah, it's gone. If my if one of my brothers doesn't have a boy, that's that.

Leanne 1:05:39
Yeah, that's

Scott Benner 1:05:42
okay. I mean, I don't care how much it matters one way or the other. Yeah, to be honest with you. I'm not out here trying to keep this. I mean, it ain't so great. You know what I mean? I don't think the world is gonna be no offense to my brothers. They're wonderful people, but, but I'm just saying, you know, I don't think it's super important to get the name going. But that's interesting. You know, my dad. My dad's name. I've never said my dad's name on here before. But my dad was my dad basically had a girl's name. And because of that, he had a nickname. And his nickname was so it was just the first three letters of his last name, like people called him, Ben. But his name was not Ben. And if you and I sat here, it's two o'clock in the afternoon, if you and I sat here for the next seven hours, and I let you guess what my father's first name was, you'd never guess it. It literally was just, it's one of those things. Like I'd look at my grandmother and think like, what were they thinking? Is it Carol? No, that would have made sense even. Do you want three more guesses? I'll give you three more guesses. And I'll tell you and I'm gonna give you the first letter. It's L the mind boggles

Leanne 1:07:00
no idea. Yeah.

Scott Benner 1:07:03
Like how could this be? It's a woman's name. It begins with ln. Now see, that's even really a woman's name. That's a pretty androgynous name. Right? You Lin Lin could be a man. My dad, my dad's given name was Luverne. Luverne. How does that even happen?

Leanne 1:07:19
I have no idea. That's like, Sue. Yeah,

Scott Benner 1:07:22
there's a boy named. Exactly right. I didn't know we were gonna do a no, we were gonna do all country songs while we were sitting around together today. Yeah, no, my father's name was Laverne. People call them Ben. So, and my mom not a big fan of his. So I couldn't name a kid Ben. That's for sure. Nobody was naming a kid Luverne based, they sounded weird

Leanne 1:07:44
that he wouldn't go by verb.

Scott Benner 1:07:47
You know? I never even kind of weird. You're making sense? I don't know. Alright, man. Is there anything that we haven't talked about that we should have? Oh, I don't know. I mean, what made you do this? Just because I asked for type twos, right?

Leanne 1:08:06
Well, yeah, I mean, it was kind of impulsive. You know that ADHD? Sure, why not? And then it was like, oh,

Scott Benner 1:08:17
did you? Did you breathe? Think it as Time was passing?

Leanne 1:08:21
Yep. I was like, oh, but then talking to you know, John,

Scott Benner 1:08:27
on the board. Uh huh. Who also has type two? He's coming on the show. Right? Right. Yeah. Right.

Leanne 1:08:33
So then I was like, Okay,

Scott Benner 1:08:36
you can do it. Yeah, there's a small,

Leanne 1:08:39
good to see. And people may even help, you know, I mean, it's it's a tough one, because everybody wants to trust their doctors, and I don't trust doctors as far as I can throw him anymore.

Scott Benner 1:08:53
Well, I mean, listen, if you get a good one, then you're you're lucky, you know? And then you can but if you start getting money if you taken six different pills and injected a bunch of stuff and your blood sugar's you know, you're a one season the elevens. And your blood sugar's are four and 500. I mean, somebody, somebody's not giving you the right answer, that's for sure. And no, yeah,

Leanne 1:09:12
well, I guess, I guess, what I what I really mean by that is, when it comes to diabetes, it doesn't matter what type you are, if you don't take control of it. There's nothing the doctors can really do for you. You know, I

Scott Benner 1:09:28
mean, they don't know you. Everybody is different. Yeah. That's that honestly, and they just go by protocol. That is the most insightful thing anyone said on here in a while, you're 100%. Right? Really, you have to do this for yourself, and you have to take I mean, common sense, I think is of the utmost importance. You can't just fall into like patterns where you say, Well, this is what they told me it's not working so then it must just not work. Like it That can't be your answer. It's your health, like, at the end of bed at the end of poor health is death. You know, like you can't it's not like you're ignoring replacing a screen door on your house or a creaky board on a floor or something like that, you're not gonna just start walking around at one day, like, you're gonna, you're gonna die. Like you were on your way to dying. You know? And you figured that out. Like, it's, it's really interesting that you had the same exact kind of epiphany thing that I've heard so many people talk about on here, so many adult type ones, who would have described their care as shaky, maybe have a child or get married, or have a child get diagnosed, and then they realize, Oh, God, I have to stay here. And I'm not on the quick path to staying here. I'm on the quick path to leaving, and I have to fix it. And it's the same thing happened to you. It's, it's got nothing to do with diabetes or type one, it's a human thing. Like you. You were faced with an ultimatum that didn't have an escape plan. And you were just like, Alright, why I mean, I'm not I'm not gonna, I'm not leaving. So I gotta do something. And I'll be damned. Like, we ended with no training whatsoever and only a podcast under your arm, you're giving yourself three and a half units of insulin an hour as a type two in a basil. Like that's a lot of you're laughing. But that's a lot of it's a lot of common sense. It's a lot of caring about yourself. It's a lot of saying, I'm not going down without a fight. And that's, that's all really important. You know, you need those things.

Leanne 1:11:38
I don't do anything without.

Scott Benner 1:11:41
I mean, listen, I wouldn't went on that damn vacation after the kid got started. I'd tell you that much. I'd been like, look, kids, we're not going to Silverwood right now. I need a minute. But you were like, Let's go. Load up load.

Leanne 1:11:56
I actually I was in the hospital. I told my my 15 year old I told him and I said, Hey, little change of plans. I'm gonna need you to pack all our bags for me Sure. We all have swimming suits and, and clothes to wear.

Scott Benner 1:12:13
And when we get home, we're still doing this. You know,

Leanne 1:12:17
we had to buy hoodies we had.

Scott Benner 1:12:21
But you hear people talking about being afraid to go to college? Or, you know, how's my son gonna do this? How's my daughter gonna do that? You were just like, we'll do it. It'll be alright. And you just did you know? Yep. Yeah,

Leanne 1:12:33
well, I'm not gonna. I decided since she was diagnosed, and she was crying. And she was like, I'll never be able to have this. And I said, Listen, baby, you're gonna be so sick of candy. You're not gonna want anymore?

Scott Benner 1:12:46
Yeah. No, no kidding. I've heard art and be like, I don't want that. Please don't give me that.

Leanne 1:12:50
Yeah, yeah. So we we actually don't use candy or anything like that to bring her blood sugar's up anymore. Because she's so sick of it. Yeah, I believe it. I really do. And so, you know, all we do is eat. Text or eat

Scott Benner 1:13:09
snack? Yeah, yeah, no kidding. And she's doing okay, how much of it she managed on her own.

Leanne 1:13:16
Most of it. Good for her. I watch her follow up. And I tell her, you know, if I see her trending down and she's in school, not really paying attention. I'll just shoot her a little text if she means just a little bomb. I'll say snap. Yeah. But if she needs a full fledge, stop that low.

Scott Benner 1:13:41
Eat. And that's it. And that's how you guys are doing it. That's really wonderful. That's

Leanne 1:13:45
it? Yeah, she matter of fact, she. She went to spend Christmas vacation. She spent a whole week at her friend's house.

Scott Benner 1:13:55
By yourself. Yep. Oh, good. You didn't worry about it. But you watched her a little bit from a distance with a Dexcom follow.

Leanne 1:14:02
I have alarms

Scott Benner 1:14:05
where they said that by the way for her.

Leanne 1:14:08
Um Let me check my other phone here.

Scott Benner 1:14:12
Where do you set yours?

Leanne 1:14:16
Mine Oh, okay. Hold on. So her settings I have her at at 75 for her low to alert me. And then on the other app I on on one app. And then on the other app, I have her at 70. Okay. So I know the difference between the two. Yeah. And then her high is one ad right now but we're bumping that down next week to 150

Scott Benner 1:14:53
for you. That's excellent. And what do you do for yourself?

Leanne 1:14:56
So my mind is set. I My correction range is 70 to 80. My suspend is 70. My Basal rates are 84 Yeah,

Scott Benner 1:15:11
you don't get very high. You're saying anymore?

Leanne 1:15:14
I don't get usually over 120.

Scott Benner 1:15:18
That's excellent. Good for you. Well, yeah, now they are gonna make you work in that clinic.

Leanne 1:15:25
Well, I don't I'm not as aggressive with hers because she is she has hormones going on and what she's Yeah, so one ad with hormones is pretty good, I think. No, I

Scott Benner 1:15:35
do too. I also think she hasn't been doing it that long. Like you're talking like a professional here. But I mean, how long have you been at this? Really? Not that long. Right? Is she honeymoon? Do you think at all or? No? She's done with that now, but you did see it in the beginning.

Leanne 1:15:52
She was horribly bad. That's why I pushed for the pump so bad. Um, and then I got her on the pump. It's just been the last last month that she quit with any money. Okay, is it getting? Yeah. And then her needs went? doubled.

Scott Benner 1:16:10
No kidding. That quick. Yeah, that's what we add to it. It's hard to like, people come to me all the time. Like, it can't be like, it was just this. And now it seems so much more like a it can be like it just, it can happen. It can happen quietly and slowly, or it can happen quick and loud. You know, there's no say in how it's going to end if you have a honeymoon that you're that you're living with.

Leanne 1:16:31
Right. So like, for instance, you know, like I said, She's, she's got hormones going on right now. And she's in range 97.5% of the time.

Scott Benner 1:16:42
That's great. You're doing terrific. Are you thinking about the Omnipod? Five, are you gonna stick with a loop?

Leanne 1:16:48
I'm gonna stick with loop. I like the flexibility of it. The better control the tighter control. Now, you know, I'm glad that they have the Omnipod fives for you know if she goes off to college or whatever. That will be an option for her. Or if something happens to me. That's an option for her.

Scott Benner 1:17:08
Yeah. Well, yeah. Because you had to did you did you set that whole thing up yourself? Like, download the? Yeah, okay. Yeah, I gotta be honest, I couldn't do it.

Leanne 1:17:19
It was it was a challenge. I set that up. I set up Nightscout. I set up the loop follow. And then of course at school yesterday, she somehow reset her phone. And so she was stuck with her basil. And I just update yesterday. And so she was stuck with her basil. And I was like, the school called me and I was I just been there. Drove 50 miles up to get my grandson because he was not feeling well. Got back home and had to drive back up there to get her. But I do see 50 Pull that pawn off of her right now.

Scott Benner 1:18:04
It's gonna take you too long to get there. She took it off till you could get there. Right so she wouldn't be getting the extra insulin she didn't need. Right. Interesting. But you're like, oh, yeah, like MacGyver over there.

Leanne 1:18:16
She got up to 154 before I got there, it took me about 25 minutes.

Scott Benner 1:18:21
Okay. So put a new pump on put new settings with it.

Leanne 1:18:26
Well, I had no I had to bring her whole phone home and

Scott Benner 1:18:31
reprogram

Leanne 1:18:32
it. Reprogram.

Scott Benner 1:18:37
With this kids go to school. 50 miles from your house.

Leanne 1:18:40
No, they're 25 miles out. But I was in town yesterday when they call Oh, and you

Scott Benner 1:18:45
were farther away when it happened. I got it. Yeah. All right. I don't pretend to understand where you live. It sounds like you live in the middle of a forest.

Leanne 1:18:52
I live in a in a place called hum tulips, Washington.

Scott Benner 1:18:55
Wait a second. Don't go anywhere. I was about to say goodbye. But now it's not happening. That's a real place. You didn't make that up. I'll be Damn, that's a real place. So is there another meaning to hump tulips? Or do you live in Tulum? Washington, what's going on?

Leanne 1:19:17
Well, there's a couple of different meanings for hump to UPS, but

Scott Benner 1:19:24
alright, I'll figure that I'll figure that out later. Oh, my god. I can't thank you enough for doing this with me. I really appreciate you taking the time. Well, it was fun, though. I had a great time. Are you kidding me fun. This is the best podcast I've ever done in my life. I expect to be nominated for an award for this. I don't know where but I want it to happen. I had a wonderful you really are. You were just unexpectedly delightful and insightful. I didn't know what to expect. I would like to have more conversations with type twos and a If they're listening, I want them to know that what I expect is that most of the conversation is going to be you saying, I don't know. You know, but I think I think there's some value in hearing that other people don't know. Because, you know, then someone listening, whether they have type one or type two, maybe they'll feel a little less, like a failure for not understanding, you know, and maybe that's the first step to kind of finding your, your balls and, and going for it, you know?

Leanne 1:20:28
Right. You know, it's, it's hard. It's, it's really hard when when you do feel like a failure, because you're doing everything they tell you to do. And you're not getting anywhere. You're pedaling backwards because there's damage being done to your body. My doctor told me to just make sure my my morning blood sugar's were 150 That was your goal. That was the goal. Yep.

Scott Benner 1:20:55
Try not to die right away, but you won't live too long. But yeah, we're gonna do that whole,

Leanne 1:21:01
and I just kept thinking, who's gonna take care of all these?

Scott Benner 1:21:06
No kidding. I mean, honestly, that's a lot of kids out. How, by the way, how old are you? 50

Leanne 1:21:12
I'll be 52. Tomorrow,

Scott Benner 1:21:14
tomorrow. And how young is the youngest kid? Oh, eight. Okay. All right. Yeah. All right. Well, you need to make it near 60s At least just to get that one out of there. Right. Yeah. And for how about for you, by the way, like, you know, I'm sure there's things you'd like to do. Chief among them not be aching, just all day long and in pain from just cleaning the house and stuff like that? You deserve to live? Well?

Leanne 1:21:41
Well, I you know, I my goal. When I started having children. My goal was to be done and have all the kids out of the house by the time I was 40. Yeah, yeah.

Scott Benner 1:21:54
Got that pretty wrong.

Leanne 1:21:57
Well, now I'm going for 6565

Scott Benner 1:22:02
I'm hoping to own something that I enjoy once before I die. Like that's how I think about it. Like I have all the money goes out the door. For all the things for the kids. Every once in a while. I'm like, I wonder what I would have done with that money if they weren't here. Like what I've just saved it maybe that would have been nice or bought something nice or gone on a vacation. Like I haven't been on it. You said you went on a vacation I got jealous was like oh, that sounds

Leanne 1:22:27
we go somewhere every just about every year. You know what be it be at home to Alaska, or you know, I took him I took him on a six week vacation to Las Vegas.

Scott Benner 1:22:42
You went to Vegas? What do you do in Vegas for six weeks with kids?

Leanne 1:22:47
Well, we we rented a house and had a pool and just hung out. just hung out.

Scott Benner 1:22:54
Damn, that sounds like the right idea. Alright, I'm doing that. So just take an Airbnb or something you just jumped in and why not kidding. I'm thinking I'm kind of crazy like that, though. You know? Oh, listen, whatever kind of crazy. You are is working fine. So you're you're okay, you know. That's amazing. All right, I'm gonna let you go. Thank you so much. Can you hold on for one second? Oh, thanks.

First, I want to thank Leanne for sharing her type two story. I'd also like to thank Dexcom, makers of the Dexcom G six continuous glucose monitor and Omni pod makers of the Omni pod dash. I'm also going to remind you to go to dexcom.com Ford slash juice box to learn more about the Dexcom G six. And check out that free 10 day trial possibility. While you're on the internet, you can also go to omnipod.com forward slash juice box, see about the possibility of their 30 day free trial the Omni pod dash, we're just get started right now just jump in baby. If you're using insulin, these devices are for you. The next time you see a type two story pop up on your feed, it will be with John. But we need more people to share their stories. So I need you to reach out. If you have a type two story that you want to tell. Find me. Okay, go to juicebox podcast.com. And there's a link there where you can send me an email. I hope to hear from you. Don't forget if you have type one diabetes and you're a US resident or you're the caregiver of a type one and a US resident, you can go to T one D exchange.org Ford slash juice box right now and take a survey that will take you fewer than 10 minutes that will help people living with type one diabetes and support the podcast and make you feel good because you're doing good stuff. And does other stuff do you'll read about it when you get to the link T one D exchange.org forward slash juicebox. Please subscribe and follow in the podcast app that you're Listening in right now that's all I've got for you I'll be back very soon with another episode of The Juicebox Podcast


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