#1516 Middle Name Danger
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Sarah is mom to a 16-year-old with type 1, diagnosed at 12. While there's no family history of autoimmune issues, Sarah has faced her own health battle with thyroid cancer.
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Scott Benner 0:00
Hello friends and welcome back to another episode of The Juicebox Podcast.
Sarah 0:14
My name is Sarah. I am the mom of a type one.
Scott Benner 0:19
Please don't forget that nothing you hear on the Juicebox Podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. AG, one is offering my listeners a free $76 gift. When you sign up, you'll get a welcome kit, a bottle of d3, k2, and five free travel packs in your first box. So make sure you check out drink AG, one.com/juice box to get this offer, don't forget to save 40% off of your entire order at cozy earth.com All you have to do is use the offer code juice box at checkout. That's Juicebox at checkout to save 40% at cozy earth.com my diabetes Pro Tip series is about cutting through the clutter of diabetes management to give you the straightforward, practical insights that truly make a difference, this series is all about mastering the fundamentals, whether it's the basics of insulin dosing adjustments or everyday management strategies that will empower you to take control. I'm joined by Jenny Smith, who is a diabetes educator with over 35 years of personal experience, and we break down complex concepts into simple, actionable tips. The Diabetes Pro Tip series runs between Episode 1001 1025 in your podcast player, where you can listen to it at Juicebox podcast.com by going up into the menu, the episode you're about to listen to was sponsored by touched by type one. Go check them out right now on Facebook, Instagram, and of course, at touched by type one.org, check out that Programs tab when you get to the website to see all the great things that they're doing for people living with type one diabetes, touched by type one.org this episode of The Juicebox Podcast is sponsored by Medtronic diabetes and their mini med 780 G system designed to help ease the burden of diabetes management, imagine fewer worries about mis boluses or miscalculated carbs thanks to meal detection technology and automatic correction doses, learn more and get started today at Medtronic diabetes.com/juice box. I'm having an on body vibe alert. This episode of the juice box podcast is sponsored by ever since 365 the only one year where CGM, that's one insertion and one CGM a year, one CGM one year, not every 10 or 14 days ever since cgm.com/juicebox you can talk to Jesus or breathe deep or do whatever you're going to do. And then you go ahead and introduce yourself. And then I will have a follow up question, which, this time I can't tell you what it is because I don't know yet. And then we'll chat for like an hour. Okay,
so you can go whenever you're ready. Okay, I'm so sorry. Don't be sorry. I was like, I was like, Oh, this is so
Sarah 3:20
this is time for my deep breath. I thought you were talking to Jesus.
Scott Benner 3:24
You're like, Jesus, I'm gonna make a podcast now. Please don't let me say anything embarrassing. I thought you were praying. And then I realized that she's just waiting for me to tell her to go again. So you go ahead and go. Okay, perfect.
Sarah 3:34
My name is Sarah. I am the mom of a type one. His name is Ian, and he is currently 16, diagnosed at 12 and a half.
Scott Benner 3:44
Sarah, let me just say this to the editor, please leave all that in. I think it's hilarious. So and the long gap of silence, Rob, leave the whole thing in. Okay, okay, to
Unknown Speaker 3:53
start, yeah, maybe
Scott Benner 3:55
people will take that time to pray. You don't know, I don't so tell me a little more. What your son you said, yes.
Sarah 4:02
So he's our middle child. It's always the middle child. I think that was diagnosed. So we have an older daughter who is currently 18, and then an accident 10 years later, that's six.
Scott Benner 4:17
You're comfortable saying that publicly? Ah, yeah. He knows. Everyone knows. Tell me the truth. After a wedding, how did it happen? No,
Sarah 4:25
I had one temporary lapse in judgment. I guess I have no idea you
Scott Benner 4:33
and your husband were feeling young. You had a good week. Nobody argued for six or seven days, apparently, yeah, went out for dinner Friday night, came over. You're like, you know what? I'm gonna throw this guy a bone now. You bone. Now. Is that what happened?
Unknown Speaker 4:44
Apparently, yeah, something like that.
Scott Benner 4:46
Forget him. He's been good all week. It was present time, and then, and then you got all into it, and you were like, I love you. We should like and that whole thing happened or No, not that thought out. Oh my God, not
Sarah 4:57
that thought out. The kids were like. You're pranking us. You said, No more kids. And I was like, kind of wish, but no,
Scott Benner 5:04
yes, sorry, pick a lesser school. Yeah, all right, well, that's fine. Okay, so you've got those kids that. How long goes this one diagnosed?
Sarah 5:14
So we're coming up on four years. Oh, wow, it's a good
Scott Benner 5:18
stretch of time. Yeah, and he was diagnosed when he was 12, yes, on his 12 and a half birthday. Oh, awesome. My dad left on my 13th birthday. That's exciting. Yeah, now I think I'd rather him leave than get diabetes, but being 100% sure, yeah, I think so Wow. How did you figure it all out?
Sarah 5:35
Classic, signs up, going to the bathroom all night, drinking tons of water. At that time, he was homeschooled, so spending day and night together, you know, you just noticed those changes. We had gone on a trip in April, you know, on the flight, he's in the bathroom like five times. Didn't really think much of it, that maybe he was just nervous traveling or whatever. And then, you know, symptoms progressed, and the signs were there. He was melting away slowly in front of our eyes, losing about 10 pounds. I'd say,
Scott Benner 6:03
Wow, did you have to use the internet to help you? Or did you know the signs?
Sarah 6:07
I knew them, but I don't know why I have a type one aunt, but I didn't grow up around her because she lives in Florida.
Scott Benner 6:14
Oh, so your aunt has type one? Yes. Oh, so you've probably heard enough over the years here and there that it clicked for you quickly,
Unknown Speaker 6:22
yes, yeah, I think so okay.
Scott Benner 6:24
And then you tell your husband, hey, I think the kids got type one. And their husband goes, nah, because that's what the guys usually do. But what happened? That's
Sarah 6:33
generally what they do. But with Ian, his appendix had ruptured the October before, and we kind of ignored it and let him lay on the bathroom floor and die for a few days before we took him in.
Scott Benner 6:45
So you're fine. Suck it up buttercup. It's going to be okay.
Sarah 6:49
That's right. We took him in. Well, we didn't even take him in. We had blown to Chicago for a conference. My husband and I and my mom took him to urgent care, and we're sitting at the airport waiting to board, and she's like, Well, they did an ultrasound and didn't see anything concerning. I think you're good to go ahead and fly. So we landed in Chicago, and I get a phone call. He's having surgery in the morning, if you want to come back. I was like, Really,
Scott Benner 7:14
so why do you guys fly around so much? You fly around like you're the Obamas. What's going on?
Sarah 7:18
No, I don't know. Traveling is fun.
Scott Benner 7:21
It's awesome. I keep thinking, I should go somewhere. You should, you know, I'm going to, is what I'm like, Listen, I'm promising myself right now I am going to just like, I'm going to go somewhere, even if it's just like a three day. I used to do these things when I was younger, like, I don't know why I stopped. So, okay, so he's have All right, let's go back to the Appendix for a second. Did you fly
Sarah 7:42
home? I didn't. I run it well, I said I'm not going to make it before the surgery. No matter what I do do, I really need to come. Ian's like, No, I don't need you there. Well, my mom texts me all that night, like, Mom, guilt, you know, you should really be here for him. Meanwhile, I am not the doctor, hospital parent. That is my husband's job. I don't do appointments. So I was like, anyway, I ended up renting a car that next morning and drove the eight hours, Sarah,
Scott Benner 8:08
you gave up on being Mother of the year early. That's nice.
Sarah 8:11
I did. I did. So they just placed a drain that day, that hospitals day, because he was too full of infection, because, like I said, we had let him lay there and die a few days. Yeah. So surgery was scheduled for six weeks after that, so went back in December for outpatient surgery, supposedly, but his appendix had ruptured and adhered all over, so they had to, like, scrape different things to get it all out. So that ended up being another hospital stay and another drain. So
Scott Benner 8:38
moral, the story is, when you sniff out the type one, nobody's waiting to go to the hospital. Everybody's like, no, no, we go right now,
Sarah 8:46
yes, except for the doctor. I called Monday morning, and they're like, well, we don't have anything until tomorrow. I was like, okay,
Scott Benner 8:52
great, listen, we've already tried to kill this kid once. We think we'll go to jail if it happens again. We so we'd like to Yeah, yeah. No, seriously, you easily could have been one of those news stories. Or, like, just months ago, Sarah and her husband didn't get him medical care when he needed it. Okay, what's that whole thing? Like, the idea that he has type one that things are going to change, like, where do both your minds go? This episode of The Juicebox Podcast is sponsored by the Eversense 365 get 365 days of comfortable wear without having to change a sensor. When you think of a continuous glucose monitor, you think of a CGM that lasts 10 or 14 days. But the Eversense 365 it lives up to its name lasting 365 days. That's one year without having to change your CGM. With the ever since 365 you can count on comfort and consistency. 365 days a year, because the ever since silicon based adhesive is designed for your skin to be Gen. Mental and to allow you to take the transmitter on and off to enjoy your shower, a trip to the pool or an activity where you don't want your CGM on your body, if you're looking for comfort, accuracy, and a one year wear you are looking for ever since 365 go to Eversense cgm.com/juicebox To learn more, today's episode is sponsored by Medtronic diabetes, who is making life with diabetes easier with the mini med 780 G system. The mini med 780 G automated insulin delivery system anticipates, adjusts and corrects every five minutes. Real world results show people achieving up to 80% time and range with recommended settings, without increasing lows. But of course, Individual results may vary. The 780 G works around the clock, so you can focus on what matters. Have you heard about Medtronic extended infusion set? It's the first and only infusion set labeled for up to a seven day wear. This feature is repeatedly asked for, and Medtronic has delivered. 97% of people using the 780 G reported that they could manage their diabetes without major disruptions of sleep. They felt more free to eat what they wanted, and they felt less stress with fewer alarms and alerts you can't beat that learn more about how you can spend less time and effort managing your diabetes by visiting Medtronic diabetes.com/juicebox
Sarah 11:29
you know, I have a type one aunt, but like I said, I didn't grow up around her, and so I really had no idea what we were stepping into. Again, this is during COVID. Normally, one parent's only allowed, but they're like, you can both come it's important for you to be here, you know, the whole ICU stay to level them out, and then education, and just jumped in from there. Looking
Scott Benner 11:52
backwards, how would you describe what you went through? You didn't know what it was, what was happening, but in the rear view mirror, how would you describe it to someone else, overwhelming,
Sarah 12:01
drinking from a fire hose and then coming home and settling into that, you know, like your new life. Well, we had a camping trip scheduled for the weekend after diagnosis, and he was like, I still want to go. We're going, right? Because we were going fishing, and we went. It was a little overwhelming, packing everything, you know, because you don't know what you need in the beginning. So you're like, I guess I'm just taking everything. So move the whole house into the camper, and off we go.
Scott Benner 12:30
You know, I don't think people talk enough about the hollow feeling your house has when you get home after the diagnosis. I mean, if you've ever gone through like a death, like or a divorce or something like catastrophic you get home and there's a, I know it's not really the house, it's you, but there's like a stillness and a quiet that makes it feel like the house is hollow. And yeah, you went through that.
Sarah 12:57
Yeah, you're like, mourning what used to be. You know, you used to live this carefree. I can go anywhere, do anything, anytime, you know, like I said, Ian was home schooled, and so we were constantly, you know, going here, going there, and, you know, and then the beginning, you kind of feel like you need to hunker down and just figure it out. And, you know, change a lot of things. But in the end, I knew he was never going to eat a fruit or a vegetable, and we were just going to figure out carbs. So
Scott Benner 13:21
that was your early on understanding of it, like we'll just avoid certain foods, or,
Sarah 13:26
yeah, you know, we like, why I went to the store and did all the you know, you're like, walking through what is under 15 carbs that I can buy, that this kid will eat? And the answer is nothing, you know. So it's like you're standing there in the grocery store the first time, like, feeling so defeated with your Gatorade zero and the cart and your juice boxes for just in case, and how much meat and cheese can we possibly consume? I think a lot of people go through that.
Scott Benner 13:48
I was gonna say, everyone listening is like, Oh, I went on that grocery shop. I did that. It's
Sarah 13:53
insanity. Whenever you look back at it now, you're just like, What was I thinking? You know, you buy the quest chips that are never gonna get eaten the you know,
Scott Benner 14:02
people like, what are these? I'd rather die. Thank you. He's like, cardboard. I'm gonna pass. I just wanna say, and no shade for people who like it. But that is how I feel about magic spoon
Sarah 14:12
cereal. I never tried that because of all the, you know, negative feedback. We tried
Scott Benner 14:17
it one time, and I was like, you know, I'd rather just not, that's fine. We'll just never do this again. It's okay. Yeah. Anyway, it's overwhelming. It takes time to figure out. You have a certain expectation about what it is. How long does it take you to settle in, and when do you get the understanding of all of it that you possess currently? Like, how long does it take you to get to that point? I guess
Sarah 14:39
I would say, pretty quickly I dived in and was like, We got to figure this out. Nail this down. A one see you at diagnosis was 11.5 our three month checkup, it was 6.6 and we haven't seen a number in the sixes since then. So I think it was pretty quickly that I was like, You know what, what it is? But. Best case scenario for him, moving forward, fought insurance for a pump starting, you know, pretty close to day one, ended up getting that at three months instead of the six month wait. They told me it would be and, you know, just kind of all the things started listening to the podcast pretty quickly. I'm not sure how I found it, but once I did, you know, I started with the pro tips and the bold beginnings and just went through, like, devouring everything and trying to get him that good foundation to start out.
Scott Benner 15:25
Okay, do you insinuate that you have an A one? He hasn't anyone seen the fives now,
Sarah 15:28
yes, it's been in the five since January after diagnosis. I
Scott Benner 15:34
think so. And he doesn't have a specific eating style, all the carbs, and that's it. It's whatever you think he shouldn't have. That's the stuff. Yeah. The
Sarah 15:42
doctor was like, What's 104 carbs that you have every day at like, 330 and I was like, oh, that's an entire pizza. She's like, all right, you're very consistent. I'm like, yes, yes, he is. So
Scott Benner 15:54
you remember being young like that, it's awesome. I
Sarah 15:56
know a bag of pizza rolls, you know, just living the dream, oh
Scott Benner 16:01
my gosh. So he comes home from school ravenous, or ends his school day ravenous, yeah, yeah, I would say just that kind of time of day. Well, this is nice, like, I just feel like this is a story about how the podcast helped you take care of your kid. Is that what this is, it
Sarah 16:15
did. It was amazing, which I think was, like, vitally important, because, let's see, it was probably December after his diagnosis, I had surgery to remove thyroid cancer. So you did that was kind of another bombshell. Yeah, is
Scott Benner 16:28
there other autoimmune in the house? No, no, no. Just lucky you got thyroid cancer. Yeah, let's call it that. Okay. Well, tell me, let's go down that road for a second. So how does that rear its head? How do you become aware that that's what's going on and what's the treatment like?
Sarah 16:44
After I had our surprise, I was at my six week post baby checkup, and the nurse, as I'm walking out, was like, Have you ever had your thyroid checked because your neck looks large? And I was like, no, just
Scott Benner 16:56
say your neck looks large, lady. Leave me alone.
Sarah 16:59
Like, what are you talking about? You're insane. So anyway, I thought it was time to see a primary care physician and have that checked out. So they were following that with ultrasound for the last I guess it was four years before it was became an issue. I had nodules in both sides that hadn't shown any growth. And then in 2021 one side decided to double in size went down that road.
Scott Benner 17:22
Is the removal the end of it, or is there chemo or anything like that that goes with it.
Sarah 17:26
So I have nodules in both sides. I opted to only remove the side that had grown because the surgeon said, why would you take out both? If only one is an issue? And I was like, because I don't want to pay someone to slit my throat for a second time. And he didn't quite comprehend that, but between him and my husband, my husband was like, Well, if you broke your right arm, why would you cut your left one off?
Scott Benner 17:48
Boys about stuff like this, that's probably your biggest problem. Yeah.
Sarah 17:53
So anyway, I opted for one side. If I would have had both, they would have done the radiation. But since I left half in, we decided not to kill it off.
Scott Benner 18:01
So how do you proceed then? Like, what do you do? Like, is it just constant checking?
Sarah 18:06
Yes. So lab work in the beginning was every three months, then six months. Now we're at a year. I think I'm three years post op now. So technically, I think I'm declared cancer free at this point because my thyroid globulin levels have not increased, so that's something that we'll just continue to monitor. And if you know that left side that remains decides to go haywire, it should show up in some labs.
Scott Benner 18:28
Is it keeping up? Or do you need Synthroid? I'm actually
Sarah 18:31
on level because optimal TSH for someone post cancer is between point four and one, and my TSH was up to two, so they're trying to, you know, lower that number to keep the remaining a little bit suppressed. Okay,
Scott Benner 18:46
that all makes sense. Gosh, okay, you know I was going to tell you a little story. Do you mind? No, go ahead. Yesterday. Every one of my stories begins with yesterday, because I think I'm just so steeped in this that something is always happening. But yesterday, I had a person online tell me that they did not appreciate the way in which I delivered my like message, I guess like so to be specific, and this is not if this person is listening, you're not the only one that said this, but there's a handful of people, very excitable, that don't like using AI to make artwork for the website. Now, I have tried for years to hire somebody to draw things or create things in Illustrator or something like that. Their pricing was always prohibitive. I could never keep up with it, like I just I couldn't do it, you know what I mean? And so I went to this model because it works. I put up a lot of content. My website requires artwork to go with the content. And I can say to AI, like, you know, here's a transcript from today's episode. Make an image that supports it, and it does that, and in the end, it's great. Well, this person doesn't like that. I do that, and then this person doesn't like the way I moderate the Facebook group, and they don't like this, and they don't like. That. And I said, Listen, this is all very fixable, you know, I just, I need to hire a staff to moderate the group, you know, I'll need to hire some, you know, artists. And I went through the whole thing, like, I really went through the entire thing, and I was like, this is about what it would cost. I'd have to start a company to, you know, to employ these people. They're going to need health care. Like, you know, this and I said, so I'm just gonna need about $1.1 million a year to handle the staff and the costs and the healthcare and everything that will require to hire this group of people that you think I should hire. So if you wanna just like, you know, send that money over, I can get the whole thing up on its feet in a couple of weeks. And then the answer back is, like, well, you know, like, I still disagree with you. Like, oh, okay, so like, no real world conversation whatsoever. And in the middle of that response, I know that this is not like a positive apples to apples, but I kept thinking of Jack Nicholson the end of that courtroom drama in the military where he said something like, If you don't, like, in the manner I provide your protection, like, like, you know, like, I wish you just say thank you and go on your way or something. I found myself defending to the person and going, like, Look, I've helped 10s of 1000s of people. Like, if you don't like the way I'm doing it, like, that's fine. But like, why you got to come here and shit on my doorstep. Just don't like it, that's fine. But like, if you think you could do it better, like, go do it better yourself. But this is how I'm able to accomplish it, you know. And then I get on with you today, and I'm hearing your kids diagnosed. You're very carefree about it as a one season of fives, even though, for God knows why he's eating a bag of Gi knows pizza rolls every day. And I think to myself, like, yeah, I don't need to adjust what I'm doing, but Right? You know what I mean, like, but it's, it's a dip. It's a weird position to be in. And anyway, I'm glad you're here today, because it made me feel better, because I there was part of me that thought, like, oh, maybe I was too harsh when I responded, but I was really, like, insulted and pissed, I guess, to be perfectly honest. Yes, I'm
Sarah 22:01
very aware of this post. And the whole time you were talking, I could think the only thing I should say right now is, oh brother. But like,
Scott Benner 22:10
seriously, do you know what? What's the movie? It's a good movie. It's a courtroom drama about about Guantanamo and like, Does nobody by nobody? I mean, you and I, Sarah, are we not coming up with this?
Sarah 22:21
Nope, we're not. I am not that person for you. Hold on a second,
Scott Benner 22:24
hold on a second. Tom Cruise and Jack Nicholson, this should get us there. I got it. A Few Good Men. You've never seen. A Few Good Men I have, yeah. All right, well, all right, sir. So like, at the end of it, like, I don't know, like, he's, listen, he's obviously the bad guy, which is why this is a bad comparison, like, but, but when he's making his argument, he's like, if you don't like the way I do the thing I do for you, golf, I had a part of that feeling like, like, I am not willfully doing something bad. Like, I'm not like, like, you think I want to use AI art. Like, I don't want to, but it's my only option. I'm churning out 240 episodes a year. Like, you want me to get somebody to illustrate those? Like, seriously, I've talked to those people. They want to be on retainer. They want to make 50, $60,000 a year. I can't pay for that. And so instead of, like, stepping back and seeing the big picture, and to me, the big picture is your son, right? Like that, that, to me, is the big picture is helping people. So I'd like to ask you, how was it helpful? You said you used the episodes and the series and everything, but like you know, how it helped you along? Or is it almost not quantifiable? It just works. And you knew it worked.
Sarah 23:37
I think once you listen and start implementing, it just works. And you see it works. You keep, you know, doing the small things, and, you know, stalking the reports. You know, whenever you dig in, because he is on control IQ tandem. And so it's like manipulating those things, like figuring out the technology that works, leaning on other people's experience. It's just like such a huge conglomeration that you can't really pinpoint one thing or another. You know that you're doing. I don't know
Scott Benner 24:05
see I think, no, no, I appreciate that, because I genuinely think that that's correct. And I'll see people online, sometimes they'll say, like, well, I don't learn like that. Like you, you know, you give me something to listen to, but I can't, I can't learn that way. And I think, what do they expect to happen? Like, did they think that people just turn the the recording on, and an hour later they go, I understand all the things in the recording. Now I'm like, that's not how it happens. These ideas kind of melt into your mind, and then one day you find yourself in a situation and you just sort of know what to do. I learned how to take care of a pet that way, like I listened to a video of a guy describe how to take care of it, and when it was over, I didn't, I wasn't an expert at it, so I listened to the video again, and I listened to it two or three times. And if you would have given me a quiz after I listened to the video, I don't think I would have been like, got 100% on it, but, you know, a couple weeks or months later, and I was like, Oh, I know how to do all this and what. Right? You know, I just think it's how you learn through storytelling. But I think some people's expectation of learning is, we sit down, I tell you, two plus two is four, I tell you why, and at the end, you can describe back to me why. Two plus two is four, and you know, it forever now, and I just don't think this works that way. Yeah,
Sarah 25:17
absolutely. There was a family that, you know, newly diagnosed, and someone referred that they talked to me, and their response was, Well, what's she gonna do? The doctor already told me how to count carbs. That's all you have to do. And I was like, oh, there is so much more right than counting carbs, you know. And it's like that was all that they wanted it to be, you know. I think it's kind of overwhelming to think that there may be more than this one thing, but people have to, you know, see the bigger picture. And I was like, oh, there are so many variables and so many things. Like, I promise if you will just listen to this, your eyes will be opened and you will expound on that do not die, advice, and your child can thrive, and it took a long time for them to, you know, even be willing to accept that this was bigger than that. Yeah, and it's hard to watch people go through that and struggle for such a long period of time. When you think it's so simple,
Scott Benner 26:14
when someone says, I don't like listening to podcasts, I think to myself, like, okay, they never say I don't like listening to podcasts. So it doesn't matter. I found a better way and everything better way, and everything's fine. Now they say I'm in significant trouble. A 1c, variability, et cetera, is a mess. I don't know what to do, and now you're offering me a podcast, but I'm not a listener of podcasts like, oh, and then I swear to you again. I know this sounds badly, but I've now found the quote, okay, I have neither the time nor the inclination to explain myself to a man who rises and sleeps under the blanket of the very freedom that I provide and then questions the manner in which I provide it. I know that that's ridiculous, because it's not apples to apples, but some version of that, of that sentiment, yes, it's hard not to have it me, for me personally, listen, if you follow me online, you know, like, I don't talk that way to people. I don't come back and go, like, if you don't like what I'm doing, go, you know, go to hell. Like, I don't because I genuinely within the conversation. I don't know if this is confusing. I don't feel that way, right? I know some people don't like listening to things. I know some people are more visual learners, so they need to read to learn, or something like that. So I'm continuingly coming up with ways to help you with that. But that little tiny, like the ego part of you, the little guy in the middle, like in your chest, is like, off. I found a way to do this. Like, it's not okay, it just do it differently for me. And I'm like, I I'm trying anyway. Yeah. So here's one of the things I'm doing behind the scenes that I'll tell you about, and you'll be the only one who knows about it for very many months. I have a type one sign language translator translating all of the bold beginnings while she stands on screen and signs it. That's amazing. Now, yeah, it's going to be very cool for two reasons. First, it'll reach people who are, you know, hard of hearing or deaf, which will be awesome, but I don't imagine that's going to be a lot of like people. What I think is for the people who need a picture to be moving in front of them while they're listening, which is a lot of people, I think is why YouTube is so popular, like, because otherwise I don't really need to see two guys sitting down talking about something like, what would be the point of people watching us talk into a microphone right now? Like, to me, that's ridiculous. It's completely unnecessary. But for some people, they need it, so I thought maybe it will be visually interesting for those people to watch her sign while they're also getting the information. It's not a bad idea, right? No, not a bad idea at all. Yeah, you want to know what. It's expensive too. But it doesn't matter. I'm doing it because those people yelled at me and told me that they don't listen and learn. And so I'm trying something else now. They can watch and learn. They can watch and learn. And if that actually works, like if I actually see an uptick for that, or people report back, hey, that really helped me. Then I will try to raise money to do other things. I'm in contact with a company right now who might be able to animate the episodes like because I'm not gonna, if you want me to sit in front of a camera and do this, I'm just not doing it. I don't want to. I don't have the time to present myself that way. I record every day, like these people who make one video a month, like, that's not hard, you know what I mean, not that I could do, but I can't do every episode that way. I don't have the infrastructure for it. I don't have the money to pay for the editing. I don't I I'm not in a room that is visually pleasing like this is room, is room setup for me to talk into a microphone. You not see me. You know what I mean? Yeah, so you see my chameleon behind me. You're gonna think I'm insane. Maybe you really will. You'll be like, Oh, I'm listening to an insane person tell me about Pre Bolus confirmed. Now he is insane. There's a fing dinosaur behind him, and he's trying to tell us about, I. He's looking at me right now, by the way, I will feed you. Don't worry, buddy. Hey, there you go. He's literally he doesn't like the color of my sweatshirt.
Sarah 30:06
Aren't you surrounded by them? Now, how many do you have? I don't
Scott Benner 30:09
like to talk like that, because I think it's insulting to me and the people around me. But there are, there are three chameleons in this room, okay, yeah, and they're all different kinds, and that's it. I won't be a person with 10 chameleons one day or something like that. I have I have one that is incredibly active and colorful, and I have one that is incredibly sedentary and huge and literally looks like somebody just put a dinosaur in here. And I have one that's just crazy and like a voracious eater, like if anything I threw in there right now, this one would just go across the the enclosure like a shark and just annihilate it in two seconds. The truth is that last one I described you is the first one I got. And if I'm being honest, is not the one I wanted way to go. Kids, yeah, but my family got me, and I think she's awesome. Like, I really, I love taking care of her, take really great care of her and everything, but, like, it wasn't the one I wanted. So I have the one they gave me the one I wanted, and then a third one, just because, honestly, I had the space, and the space was being used already. And so I just thought, like, well, the space is sitting here empty. I should just do something with it and and then I just picked one that's just like, he's really bizarre. He never stops moving. He's just constantly moving around. And he's really awesome. Anyway, they they relax me. I turn around, I look at them. They relax me. They give me a good break, like in the middle of my work day and stuff like that. So a nice thing to step aside distraction, yeah, yeah. But I can't leave this room because I'm busy making this podcast so people online can tell me I'm doing it wrong way to go. Have you ever heard somebody say you're doing it wrong, and then wait, I'll do it myself. And like, no, they just wanted to let you know that it's this is not commiserate with how they would do it if they'd get off their ass and do something. I mean,
Unknown Speaker 31:59
it sounds like every husband wife relationship to me,
Scott Benner 32:04
really about, like, the dishes or bigger things. I
Sarah 32:08
Yeah, the dishes, you know, right? It's really not that hard,
Scott Benner 32:13
yeah and then, but the dishes get done no matter what. Yes, they do. Oh, look at you. You're so upset to admit that it doesn't matter if you load the dishwasher incorrectly or not. So funny. All right, so your kids using tandem, yes, which one control? IQ, Moby
Sarah 32:31
control IQ, he's wanting to make the switch to Moby in August when warranty is up. So okay, we will most likely be doing that
Scott Benner 32:39
to get a less connected feeling.
Sarah 32:41
No, just because it's smaller, I don't know, just in general, smaller, yeah, he doesn't seem bothered by it. He, I mean, we put like, a clunky case on it, and he still shoves the whole thing in his pocket with the clip. I'm like, why don't you take the clip off? He's like, That's fine. Like, he's not bothered by a whole lot. So
Scott Benner 32:58
Arden got low last night at like, 330 in the morning, she got low because at eight o'clock at night, when I could tell that her pod site was failing, and I said, Hey, I would change that now, before you ate, because it's failing, you can look back at the last three hours and see that the algorithm is having trouble keeping up with your blood sugar. This is the very end of the pump. I 100% sure that this is it's like occluding somehow you should just change it. Now she does not do it. Few hours later, I'm gonna say eight minutes after eating dinner, the pod just fails. And she looks at me because I think what she's thinking is sky was right about this and like but I don't say anything. She changes the pod, and I said, Look, you just had a pretty big dinner. You're gonna get a high blood sugar here. Now, for sure, I'm almost thinking that the pump, the Bolus you just made for the meal, is not gonna nearly be enough. Certainly that happened. Her blood sugar shot way up. It was hard to get down. It took a bunch of insulin to get it down. Made her low at three o'clock in the morning. And today, when we spoke about it, I said, Listen, I'm not busting your balls, but if you would have just changed your pod before dinner, you wouldn't have been up at three o'clock with the low blood sugar, like, and I didn't say it like that. I was very nice about it, like, I was like, Look, you know, hey, I'm like, I'm not giving you crap. Like, but this is a great opportunity to see that if the pod would have got changed before dinner, then it would have worked better on the meal. You wouldn't have got high. There wouldn't have been a big correction, you wouldn't have got low later. Thanks, Dad.
Sarah 34:28
Yeah, that's we had a new restaurant. Last Day. We tried a new Chinese place, and saw blood sugar in the 250s which we haven't seen for, you know, over a year and a half, you know. And it's like, oh my goodness, what are you doing? So it's like rage Bolus, that thing, and we'll catch the drop when it comes, if it comes, hopefully it comes. So, you know, we caught it with half a juice and half a granola bar, and coasted in the 90s the rest of the night. But before he went to bed, he was like, see you in the middle of the night. And I was like, No, we got this. We. You know, it's all right, but he's still counting on me to be the middle of the night person, and it's like,
Scott Benner 35:06
oh, so how do you handle that idea of transition? What do you give plans? Are you just one day of timing it? Or what are you doing?
Sarah 35:12
He does 99.9% of everything. I am not involved anymore. It kind of makes me a little sad. So he will let me do his cartridge change in his pump. He's like, do you really need to do this? You can do it. He's still letting me be a little involved and but most of the time he has taken that initiative and then, like I said, if it's this was like a one off, hasn't done this in forever. And he's like, You got this, you know, it's like, I'm not waking up for it, but I will gladly still be there. So
Scott Benner 35:46
do you think he is willfully giving you tasks to do because he knows you want to be involved, or is he offloading the crap he doesn't want to do because he knows you'd be willing to do it?
Sarah 35:56
No, he's letting me be involved. Because if he, like, changes it. He's like, I'm like, Isn't it time to do it? He's like, I already did it. I'm sorry. And I'm like, Really, I feel like I want to, like, take, you know, I don't want him to experience burnout. But so far, he's just been amazing about everything and, like, handling it all. And I'm like, you know, I'll still redo his calendar, and we have little magnets for site days and a different color for, you know, Dexcom and all that. And he's like, I forgot to change his calendar because his dad and I were on a cruise. And he's like, I did my calendar. I'm like, I'm so sorry. I feel like such a failure.
Scott Benner 36:33
Oh, you're trying to get the mom of the year trophy back. Now. I'm
Unknown Speaker 36:38
trying. I'm trying.
Scott Benner 36:41
You're like, I should have flown home for the appendix. I'm sorry. I'm
Sarah 36:45
so sorry. No, we went to the touch by type one conference this last year, and we went to Erica session, like the teenage session, and she recommended some diabetes etiquette resources. And he likes to point out rule seven, mom, rule seven. So I kind of took a step back, because that is, recognize that I'm never going to be perfect with my diabetes care, no matter how much you want this. So I used to, you know, if he's going high, which high is set at 150 I'm like, What are you doing? He's like, I've already corrected. What do you mean? What am I doing? You know? So I've tried to, like, take a step back from that, and I'll, I'll talk to him. He's been in the 150s for like, an hour, you know, I'm like, What are we doing? But, you know, I used to micromanage a lot harder than I do now, so I feel like we're slowly making that transition more on my part than his, because he's, you know, like I said, got a good handle and getting
Scott Benner 37:35
there is your first born girl or a boy, a girl. Oh, so this is your oldest boy? Yeah, he's my favorite. I was gonna say I don't want to, like, pull the curtain too far back on basic human psychology, but ladies seem to love their first son a lot.
Sarah 37:50
Yeah, he's been my favorite since birth. I'm not really sure why, but yeah, maybe it's the first burn boy thing that or raising my daughter is, like looking a mirror. It's really hard to raise yourself.
Scott Benner 38:02
Oh, really. Oh, that's an interesting point of view. She and you are very similar, yeah. What? So what does that do? Help me for a second, Sarah, does it make you have realizations about yourself that are upsetting,
Sarah 38:17
not upsetting, maybe frustrating. Like, man, you are just like me. How can I like criticize what you're doing right now? Because I am the same person. Oh, no. It's that you want better for them than you had. But when they're you, I mean, they're gonna turn out all right, because I'm pretty amazing,
Scott Benner 38:34
it's gonna be fine. Look at this package. Everything's going my way. Oh, and so the boy is, he's nothing like you. No, no, but he's like the guy, the boy that you married, who you're irritated by constantly. No, no, I don't know, half the time you were irritated by him.
Sarah 38:53
No, I've got a really good setup, you know. I've been a stay at home mom and oh, okay, I'm living the dream. I always
Scott Benner 38:59
watch it happen, like, when the kids do something that's more my personality. And Kelly's like, okay with it. I'm like, How come I don't get this pass? Oh, Sam,
Sarah 39:09
yeah, well, my husband and my son are both so easy going. Yeah, it's like, they're Arden
Scott Benner 39:14
said something like, funny but shitty to Kelly the other day, and she just it went right past her, and I looked her in the face, and I was like, Are you not going to say anything about that? I was like, because if I would have said that, my God, we would have never heard the end of it. That's really interesting. Okay, so you are using some of the stuff you heard from Erica in person. Now she and I made a series on that presentation. How did the series compare to seeing her in person,
Sarah 39:41
in person was just, there's no way to describe sitting in a room full of parents who are grieving the same thing you're grieving. I don't know, valuable or too sad. It's so valuable, valuable, okay, yeah, sad, but valuable, you know?
Scott Benner 39:56
And then hearing her do it on the podcast, was it a good reminder? Did you. Think to yourself, this is everything that I heard and more live, or was it not as good? Like, I'm trying to figure out if the content was good for you.
Sarah 40:08
The content was good, it was everything that we went over in person. It was just a different presentation. I don't know how to describe the difference, because you're sitting there in the room like tears rolling down everyone in the room's faces, you know, like as we're all experiencing this together, reliving all of those things, like trying to figure out how we're gonna put all this into practice, and then you hear it on the podcast, and it's a good reminder to take those steps and do those things for yourself. And I would say it was more powerful being in person, but the podcast was still excellent. And, you know, like I said, all the same content. That was okay.
Scott Benner 40:41
She's really lovely. I'm very lucky to have met her. So, yes, yeah, yeah, okay, oh, that's that's good to know. So what were your big takeaways from her, like, I mean, it sounds like rule seven is, like, leave me alone. This is never going to be perfect. What are some of the other
Sarah 40:55
ones? Yeah, just opening that communication between my son and I, because we went to her teen session, and then I went to her caregiver session as well. So realizing, you know, this handoff is happening, and he over communicates sometimes, whenever he's like, don't pay attention to this. Don't worry about it. I've already done this, you know, and that was him foreshadowing me getting ready to harp on him for something that he's already done. You know, opening my eyes to those things that were happening was very helpful. Yeah. Do you think
Scott Benner 41:20
it'll help in other parts of your relationship? Because, like, I imagine when he does that the foreshadowing thing, which is basically just him defending himself in the future against something he knows you're going to do. Does it give you pause? Do you think, Oh, he did that? Because I'm about to do this, and I probably shouldn't do that.
Sarah 41:38
I didn't see that until, like, I said going to Erica's thing. I didn't realize, you know, how much I was doing that, yeah, and so, yeah, I think it's, like, completely changed. You know, our relationship in reference to diabetes, which it's not a huge part of our everyday lives, just because it's kind of background noise at this point. But, you know, I could see where that was, you know, taking a major toll when he felt the need to defend himself.
Scott Benner 42:01
I will give a free piece of advice out to the moms, telling long, drawn out, detailed stories about your kids private life, to other people, they don't like that. You shouldn't do that, but you guys all do it. You all like, get on a phone call. You're like, oh my god, did I tell you the thing that happened to Billy? And then, like, you know, like, 20 minutes later, I have like, a compendium type understanding of what happened to Billy. Billy finds out and goes, I wish you wouldn't tell people that. And you go, I'm just telling people about my life like that. I see happen a lot. You're laughing, sir, this has happened.
Sarah 42:32
Don't feel like it has, but I know the moms you're talking about.
Scott Benner 42:36
Oh, okay, yeah, don't do that. That's that's not good. Or, yeah, if you're looking for a simple way to make your relationship better with your kids, literally don't do that. So it's tough, because it's hard to see the difference between bragging and just being proud or just wanting to share and what another person sees as private, right? You know that's hard. So having kids it's terrible. It sounds like you figured that out early.
Sarah 43:02
Oh, yeah, yeah. How old are you?
Scott Benner 43:06
41 oh, how old were you when you had your daughter?
Unknown Speaker 43:11
She's 18, I don't know. 22
Scott Benner 43:13
do you make any of these kids on purpose or No, no, I don't understand people
Unknown Speaker 43:18
that do that. I can't wrap my head around that.
Scott Benner 43:22
Oh, it's awesome. The third one just on his own, feral. You don't really pay much attention.
Sarah 43:26
Absolutely, he's insane. So he's the first one that ever broke a bone, you know, like climbing the walls, doing all the things. And Ian's middle name is actually danger. And our family, before his diagnosis was like, I think you name the wrong one danger, because our youngest is just insane, but then he's kind of made up
Scott Benner 43:45
for that. Your type one's middle name is literally danger,
Sarah 43:48
literally because his dad thinks he's hilarious. Oh,
Scott Benner 43:51
I was gonna call this episode A Few Good Men, but now I'm gonna call it middle name danger. It's awesome. Danger is my middle name. Danger is my middle name, okay, all right, we'll do it like that. It's a little long that way. Danger is mine. You see, I don't like to get into the five word titles, but it'll name Yeah, I'll figure it out. Don't worry. Hey, your husband like he wasn't using, like, I mean, you're from the middle of the country, like he wasn't on meth when he came up with that, or anything like that,
Sarah 44:15
right? No, but the hospital did call to verify that his birth certificate worksheet was correct. I might have been on drugs, but I had a natural birth, so I was like, yeah, that absolutely wasn't the case. How
Scott Benner 44:27
absolutely fucking jazz was your husband when the hospital called to double check the name, he must have been so proud of himself,
Unknown Speaker 44:34
yeah, yeah.
Scott Benner 44:37
Is that the moment when you think like, I wish I was gay.
Unknown Speaker 44:42
Might be up there. I'm
Scott Benner 44:43
stuck with this boy. And what do you think is funny?
Unknown Speaker 44:47
Yeah, we
Scott Benner 44:48
were watching the Super Bowl, and Arden watched with us. She never watches football like ever. She doesn't understand it. She doesn't know the first thing about it. But she sat with Cole and I for the super. Ball. I don't know if people don't watch football, you don't know this, but if there's a fumble, you yell ball, you know. So everyone on the field knows the balls out and they'll catch it and pick it up, like, you know, like screaming during the game, like, you know, there's a fumble, like, ball, ball, get him, kill him, that kind of stuff. And she's like, mom, she's like, they're really excited. And then later we had this, like, very real conversation, where she goes, I don't understand how excited you are about this. Yeah? And I'm like, No, I know she goes. Is this, like, your Grammy Awards? And I'm like, what she goes? You know, when I watch what's the um, the gala at the the Met Gala, Arden watches that, like she finds a way to watch the red carpet and the whole like she watches the red carpet for the Met Gala. And she goes, this is like that for you, isn't I was like, I am not even comfortable with you making that, that comparison, to be perfectly honest. Like I was like, but I guess so she goes, You guys are so excited. And I was like, issues. I don't know why. Anyway, boys are hard to figure out sometimes. So we're girls.
Sarah 46:10
Yeah, Ian said a big football fan, but he was invited by Noah gray to go to, like, pre season practice or something. They had, like, a VIP event for type one, yes, yeah. So he went just out of well, wanting to see a girl that he had met a diabetes camp, unbeknownst to me, but so he was like, hey, they're having this thing at the Chiefs practice. You think I can go? And I was like, This is bizarre.
Scott Benner 46:39
And you're sure, then you Oh, he's just going to see a girl. Yeah for him, yeah, they're definitely going to make a baby with diabetes if, yeah,
Sarah 46:48
no, that that's ended. We're done with that.
Scott Benner 46:53
Listen, I didn't realize. I didn't do the math, actually, when you said you were from Missouri, and it doesn't sound like you're big football fans, so this probably won't mean anything to you, but I just want to let you know how apps you know how absolutely elated I was to annihilate the chiefs in the Super Bowl. It was very painful to watch no good I'm glad
Sarah 47:10
Ian was trying to sell his signed hat before the end of the game. He's like before this goes really terribly. Anyone want to buy my autograph Noah gray
Scott Benner 47:19
hat or Noah gray. Noah has type one diabetes. For people who don't know he's the I mean, I guess he's the number two tight end on the chiefs, but after what I saw this past weekend, he'll probably be the number one tight end on the Chiefs next year. Yeah. Nevertheless, also, you know what's funny? Joking aside, I spent 15 minutes last night watching Travis and Jason Kelsey talk to each other after the Super Bowl ended, and taking away all of the ridiculousness and the the football and the comp, the competition and the violence and like, and just watching two people who just, you know, this is what they do for a living, and they've been working at it since they were kids. And like to see them talking about it, it humanized it to the point where I was like, I can't watch this. It's gonna ruin football for me. I want to see them as characters in a play. I don't want to see them as people. Yeah, you know what I mean, and I guessing now, as I'm saying that that's probably how the person's able to come online and tell me that I'm doing it wrong, because I don't think they see me as a person who feels the way I feel, and they see me as a character in a play, and, God damn it, they're just the voice in
Unknown Speaker 48:26
the machine. You're not. I can't believe the
Scott Benner 48:28
conversation went this way, because now I have to apologize to that person. She doesn't think of me as a person. She thinks of me as the voice that makes the thing, yeah, because Travis Kelsey is not a person who's upset that he's old and didn't play well in the Super Bowl because he felt old. Oh my god, he could not move in a couple I felt bad for him. There was a goal line play where he was supposed to pop off and get open. I was like, He's not even moving. I'm like, like, he's Scotty slow. And to think about the drop off that must have from where he was, because, I mean, he's obviously one of the best people that's ever, like, done it performance wise, you know, and to see it fall apart so quickly, and then people start joking like it's Taylor Swift's fault. Like, you know what? I mean, that stuff's not cool. Like, I mean, it's not Taylor Swift's fault that he's older. Oh, God, all right, well, I'm sorry to the person who said that to me. I know I if we were in person and you were talking to me, you wouldn't say that stuff. And far, because I wouldn't say that, I wouldn't say that to Travis Kelsey, you know what I mean? Yeah, like, I felt bad for him. Sucked. He was terrible. There was one play where, uh, Kermit, the frog got away going to the right, and so, like, he's moving right, and Kelsey is supposed to come up and Chip somebody and then be open and kind of drift across the middle, and he just gives up on it, like you're watching the wide play, like Kelsey, I know there was a flag, and he probably thought, like, this is coming back one way or the other, but like, his amount of effort was nothing, and like, and the play is just going on and on and on. And he could have rolled towards the play and tried to help him, and he just. And I thought, wow, that's it. Made me talk with my son about the game, and I said, you know, like, you don't realize, like, how demoralizing it must be. Like, they showed up there and they were like, We're gonna win. Like, this is gonna happen. And then before you know it, it's later in the first quarter and and they're down by a lot is happening? Yeah, yeah. And they they can't complete a pass, they can't move the ball, they can't do anything, and the flags aren't helping them, which, you know, we can argue one way or the other about, but they've clearly been helped along the way in these last couple of years, here and there and like, so none of that stuff is happening, and then it's going bad again, and you're still human. Like, you know what I mean? Like, I just feel like, in his mind, he must have been like this. Just nothing's working, you know. And then, then that's what Cole and I ended up talking about like, because I related it back to other parts in life. Like, if you get up every day and do a thing and it just doesn't come together for you, and you're doing the right thing. I get how people quit or get burned out, you know. And so, and it made me think about diabetes. Then, like, in all of you, like, you get up, like, as I saw somebody say the other day, I've listened to the pro tips. I understand what you're saying. It just doesn't work out for me. And I know that if I was there, I could probably see the bit that, like, they're missing. I can't do that. I can't go live with the person for three days and figure it out, and they're not getting to it. And to me, like that message I got online is how, when I saw that message, I felt the same way I saw when I saw Kelsey throw his hands up in the air, like, like, this isn't gonna work. It's terrible. Like, you know that feeling is terrible in general. Anyway, I didn't mean to be thoughtful about football. I just want to watch them knock each other's heads off and run around and score. But it seems like they might be real people, so I guess we can't do that. Yeah. Anyway, tell me a little bit about what it was like to sit through that soup. No, I'm just kidding. Could you just live through the pain of it for me, of watching nothing now, I'm joking. What do you want people to know about diabetes? You've been it doesn't have to be hard. It really feels that way too. Yeah, yeah, that's awesome. And
Sarah 52:06
maybe that's because I'm not the one living with it. I don't know. Do you think your son thinks it's hard? No, no, he actually has aspirations to go into health care and do something with diabetes. So,
Scott Benner 52:18
oh, good. That's nice. But you don't think he doesn't struggle No, and he has never
Sarah 52:26
No, and that's what I'm just I think part of me is just kind of waiting for that to come. I hope it doesn't ever come. But, you know, the reality is that it's highly like they let he will experience burnout at some point. But I think so. I don't know. And the age of automation, maybe not. I
Scott Benner 52:45
don't know. Like, Arden's pretty automated, and I still think there are times where she's just like, like, there's only so much I'm willing to put into this. Do you know what I mean? Yeah, like that, not willing. Might even the wrong word. Like, just able. I think maybe is a better word. Like, from my, from my perspective, I just like, Forget diabetes. I think anything you have to do every day would get to you, right? You joked about marriage, like, three different times. I have to, like, it's hard. Like, and it's not hard because it's bad, or you don't love the person, or you're not motivated. It's hard because it's every it's every day. Yeah, you know, like, my wife's going away for for business, and my son's going away the same weekend with his girlfriend, and Arden's going away somewhere, like, for the night. And I was like, So you're telling me that Friday into Saturday, I'm by myself? And they were like, Yeah. And I thought, oh, it's gonna be awesome. I'm not that person, like, I love being around these people, like, and still, like, they were all just gonna be gone for a day. I was like, and I'm sure they're thinking the same thing about me. They're probably, oh, this guy just talks so much about everything. I can't wait to not talk about things like, because, I mean, look at me, my son's 24 four days after the Super Bowl. I'm talking about humanizing Travis and Jason Kelsey with him at 1130 at night last night, he's probably like, Dude, can we just laugh at this meme? Some guy sent a picture to Travis Kelsey that said, you should have stuck with the thick girls. And my son found that very funny and like, but it's not like, not on a personal level. Like, on a personal level, like you're saying, like, hey, the person you're with right now in dating and probably love like, that's a mistake. It made you bad at football, which none of that's true. But like, right? You know, you remove yourself from all the personal stuff. Anyway, I'm in there, like, trying to, like, talk about people's feelings and giving up and stuff like that. And he's probably just like, man, like, Let's just enjoy this. Yeah, yeah. So they're probably thrilled that they're leaving here. You know what I mean, yes. And how great would it be if you could just, like, because you hear people say it all the time, like, if you could just take this from me for a couple of days like this, the management of it and the thinking about it like, that's a message I get from adults a lot like, you know, it would be so cool if you could just come here for a couple of days and just just push the buttons. Yeah, don't let me have to think about it. So you're already thoughtful enough to know that as well as he's doing right now, your expectation is that he very well could trip and fall at some point. Right? Yeah. Do you have an idea of when you think it might happen?
Sarah 55:16
I don't know. He got accepted into a CNA program for his last two years of high school. So I'm wondering if, like, the mental load of the extra, you know, college level courses while he's in high school and maintaining all of that is going to be, you know, where it's a little bit more than life right now has been pretty easy scholastically. So I'm wondering if, when he gets into more mental load with school, if diabetes, mental load will take a back seat, or you know what that's going to look like, I
Scott Benner 55:46
have an expectation that I'm going to have a conversation with Arden about two or three years from now, where she's going to have some clarity about her stress level once she got the College and I'm wondering what she's going to say about it too. So I think you're, you're smart to think about it that way. Like, yeah, today it's not that big of a deal. But, like, the extent of his problems are, I might like this girl at the you know, and I Wait, I gotta find a way to get to Kansas City. Yeah, I got, listen, I really have to get to Kansas City, and I need pizza rolls when that's your life, then the diabetes doesn't seem so bad, but Right, if you're carrying a course load and you're you know there's expectations, and those expectations are both about your future and their financial and their everything else, and like, at what point does your capacity bubble to the top? And you have to let some steam out. How are you going to get the steam to be college or my dating life, or the other things he's worrying about, it's going to be so much easier to let go the diabetes stuff. Yeah, yeah. Sucks. Yeah, yeah, yeah. Sarah's like, yes, it sucks. The whole thing sucks. Yeah. I keep thinking about making a short series, like, series of, like, five or 10 minute conversations, where just somebody comes on, introduces themselves, and then bitches about one topic, about diabetes, straight through, and then it stops. Yeah, it might be a never ending list of people who are interested in doing that. You know what I mean? Like just bitch just a bitch session for five seconds to let it out. But I don't know. Is there anything we haven't talked about that we should have? I don't think so that's it. I
Sarah 57:22
didn't send anything on my list. I just thought it'd be nice to chat. So we've covered everything I included,
Scott Benner 57:27
yeah, oh, that's awesome, because your thing, you've maybe the the least descriptive, like, let me It says, what are some of the themes you hope to cover in your episode? And you said, who knows? Right? Teen years and the balance of control and independence, that's what you said. So yeah, and it's tough, because you talk about it, it makes you feel like, oh, I need to give somebody an answer. And even the people listening might be like, Oh, Sarah's gonna have the answer to this. But I think the answer to it is to just be ready for it, right? And then try to be mindful of who you are in the scenario, who they are, what the implications are, and how you can release pressure from people in certain ways. Like, you know, like, your your son's already showing you, like, here's some things, Mom, you do that I don't like, right? Like, don't do them. And then you realize that. And did you have any success stopping? Yeah,
Sarah 58:19
I feel like now I'm I'll be quiet until we hit the two hour mark of staring at a 150 and then you're gonna get up and you're gonna drink some water and you're gonna do some things, but I'll leave you alone until then. So
Scott Benner 58:34
I think that's reasonable. Is you see a person in the in the group recently say, hey, my kids, just like ignoring all my texts and like, they don't know what to do. It's funny because my initial thought was kind of what you thought, and what we've been talking about here is, like, you can't be too overbearing. That's not going to be okay. You just quit texting them. But if it's really an emergency situation, you absolutely have to hear from them. Like I said, like, I'd send to find my iPhone. They're very hard to ignore, right? Yeah, but at the same time, like, that's not a thing you do every day, like that's a thing, like, if there's a real, genuine emergency, not if the blood sugar's 160 for a couple of hours and they're not doing anything about it, you've got to balance management, long term health against psychological impacts and your personal relationship, you know, like there's a lot here to balance, really, my god, yeah, there is. I want to finish with. I just want you to go back over something with me. You said sitting in the room talking to Erica was emotional, and I'm wondering if you can put words to the why it's
Sarah 59:39
hard to describe to anyone who hasn't experienced diabetes, how life changing it truly is. And all those people understood that in that moment, I guess, feeling understood and related to
Scott Benner 59:53
Yeah, yeah, just that idea that I don't have to explain this to anybody in this room, right? They know how. I feel, yeah, and then that, that kind of feeling of, what does it feel? Supported?
Sarah 1:00:05
Supported? Yes, I would say understood. Is a big one. Have
Scott Benner 1:00:10
you ever seen the movie, Rudy? I know you said you don't watch movies you've seen Rudy, okay, right? Awesome. At the end, when they let Rudy play, it makes me very happy. Like, right? Like, but I'm not happy for Rudy, like, like, there's something about the adulation of a group of people, or the support of a group of people, or what you're talking about, like, the understanding of what this means to Rudy to go into the game. I can't believe there's so much football on this episode. Yeah, there's something about that that makes that feeling very powerful. Yeah, I would take an entire college course to understand that feeling, because it is so incredibly impactful when you have that around you. And the problem is, if you've never been through something like this before, or you're maybe a bit of an isolationist to begin with, when someone tells you how important community is you could be like, Oh, that's stupid. It freed you up by imagining, I imagine being in that room for that hour changed you somehow, yeah, yeah, yeah, okay, well, I'm super happy that you were there and we met while you were there. Is that, right? Yes, yeah, that's awesome. I have such a good time at their thing. Yeah, they do a really great job. And you
Sarah 1:01:22
traveled to get there. Yeah, we flew for Missouri.
Scott Benner 1:01:26
I remember, I believe I remember you telling me that, and I wanted to go to Sea World out the deal. So, yeah, just an overwhelming thing to have somebody tell you they flew somewhere to see you. You know what I mean? Like, I once had somebody tell me they drove 15 hours to go to a thing I was speaking at, I was like, I don't think I drive from you NO and NO, and I appreciate that, because I when they said it, I was like, why? Like, I was like, my god,
Sarah 1:01:47
so much effort. They must have been scared of planes. I would have
Scott Benner 1:01:51
called you on the phone, like, if you needed to talk to me that badly. All right. Well, I really appreciate you doing this. Can you hold on for a second? Yeah. Thanks.
The conversation you just heard was sponsored by touched by type one. Check them out please. At touched by type one.org, on Instagram and Facebook, you're gonna love them. I love them. They're helping so many people. At touched by type one.org. Thanks for tuning in today, and thanks to Medtronic diabetes for sponsoring this episode. We've been talking about Medtronic mini med 780 G system today, an automated insulin delivery system that helps make diabetes management easier day and night. Whether it's their meal detection technology or the Medtronic extended infusion set. It all comes together to simplify life with diabetes. Go find out more at my link, Medtronic diabetes.com/juice box. I'd like to thank the ever since 365 for sponsoring this episode of The Juicebox Podcast, and remind you that if you want the only sensor that gets inserted once a year and not every 14 days you want the ever since CGM, ever since cgm.com/juice, box. One year, one CGM. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. If you're not already subscribed or following the podcast in your favorite audio app, like Spotify or Apple podcasts. Please do that now. Seriously, just to hit follow or subscribe will really help the show. If you go a little further in Apple podcast and set it up so that it downloads all new episodes, I'll be your best friend, and if you leave a five star review, ooh, I'll probably send you a Christmas card. Would you like a Christmas card if your loved one is newly diagnosed with type one diabetes and you're seeking a clear, practical perspective, check out the bold beginning series on the Juicebox Podcast. It's hosted by myself and Jenny Smith, an experienced diabetes educator with over 35 years of personal insight into type one our series cuts through the medical jargon and delivers straightforward answers to your most pressing questions. You'll gain insight from real patients and caregivers and find practical advice to help you confidently navigate life with type one. You can start your journey informed and empowered with the Juicebox Podcast, the bold beginning series and all of the collections in the Juicebox Podcast are available in your audio app and at Juicebox podcast.com in the menu, the episode you just heard was professionally edited by wrong way recording, wrong way recording.com you.
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