#824 Haaech Bee A1c
Clare has type 1 diabetes and a delightful accent.
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Scott Benner 0:00
Hello friends, and welcome to episode 824 of the Juicebox Podcast
Claire is an adult living with type one diabetes, she got the diabetes while she was pregnant, and she has an amazing accent. This is pretty much what you need to know to enjoy this episode. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. If you are a US resident who has type one diabetes, or is the caregiver of someone with type one, please take the survey AT T one D exchange.org. Forward slash juice box it will take you fewer than 10 minutes. It will help you diabetes research and me it's a trifecta of goodness T one D exchange.org. Forward slash juice box. Join the registry take the survey. That's pretty much all you have to do. You can do it from your house. Wave unprecedented time left What should I do with it? I'm so indecisive today. Oh hell no, I'm out of time. All right, hold on a second.
This episode of The Juicebox Podcast is brought to you by touched by type one. This is a terrific organization helping people with type one diabetes, and all they want is for you to check them out on Facebook, Instagram, where it touched by type one.org This will take you look you're on your phone constantly. I know you are okay touched by type one.org Just go look, they're amazing. You're gonna get they're gonna be like, Oh my God, look at all the good stuff they're doing. And that'll be it. Sorry, The podcast is also sponsored today by ag one from athletic greens. With just one scoop of delicious ag one I start my day off every day with a green drink that fuels me and tastes good. Athletic greens.com forward slash juice box.
Clare 2:18
My name is Claire. I'm 35 years old and I was diagnosed with type one diabetes at 26 weeks pregnant.
Scott Benner 2:27
2825 years old.
I'm 3535 Excuse me. Yeah,
how long ago were you pregnant?
Clare 2:34
So that was September 2020. I was 26 weeks pregnant at the time. And I kind of found out by accident. So I went to the doctor and I just kind of mentioned Hey, you know, my skin's really itchy. And he sent me in for some other tests. But at the time, he was like, you might as well do your gestational diabetes test at the same time. So I went and I did that feeling fine. Like I really didn't have any symptoms looking back and and my blood sugar was 20 mm allel an hour after the drink that they give you. So when he seen that he knew right away that it wasn't just gestational diabetes. And when I got into the endocrinologist, she ducked pretty quickly that my mom was celiac. I had thyroid issues, so she kind of knew that everything pointed towards type one right away. So yeah, it was a huge shock. My first pregnancy definitely wasn't something that I was expecting.
Scott Benner 3:42
I guess not. What kind of thyroid you have hypo Hashimotos.
Clare 3:46
Oh, hypo. So I don't like how I found out about the thyroid was before I got pregnant. I just got bloodwork done. And my doctor said that I was borderline and just because it was trying to get pregnant, let's just put you on some medication. And so it was on a really low dose. And that went kind of up in pregnancy. And now it's I think it's like point seven, five, I'm taken daily. So like I'm just I looked up my last thyroid test here. It's 1.76. I don't know if you know what that means. But it's the range. So that's your TSH. That's my T. TSH. Yeah. So it says it's a range. I don't know. It's hard. I think that was the hardest thing for me getting diagnosed was there were so many different opinions from doctors especially that is really hard to know who to listen to and what advice to take
Scott Benner 4:45
what was happening. What were people saying.
Clare 4:48
Like a lot of stuff was kind of like, No, it can't be it's not going to be type one. Like it's likely not going to be type one and just my GP versus what my endocrinologist was See, and even the last time I went to see her was maybe six months ago when she was like, I really just don't think it's type one like it's, you know, you're not on insulin right now. Like, I don't think you know, you might never need it and, and then just from having a hypo, in the hospital I remember when I was in labor, one of the nurses telling me that maybe if I didn't drink as much orange juice, and I kind of looked after my diet, that things wouldn't be so bad, I wouldn't have the diabetes. So that was kind of a shock to the system, because it's all it's all new. And at the time, you don't kind of realize that it's out of your control, you kind of have you hear a nursery doctor tell you something, you tend to take what they say seriously, and it's kinda, you have to develop a thick skin very quickly, I find
Scott Benner 5:44
I have a question, do you drink in a strange amount of orange juice? No, I
Clare 5:49
was just drinking a little bit for a high when I was in labor, in the middle of a pandemic, with a facemask on not knowing what the hell was happening. Um, so it was kind of like not the right time, even if it was something caused by diet to even bring it up.
Scott Benner 6:05
You don't think that was a good time?
Clare 6:09
Like just bedside manners was lacking. And like, typically, I'd be very quick to kind of, you know, talk back, but I think you're a little bit more vulnerable when you're in that situation as well. Right? Well,
Scott Benner 6:19
Claire, is there anything about you like visually, that would make someone think you're not taking care of yourself?
Clare 6:24
No, I don't think so. I mean, unless I'm seeing a different version of myself and everybody else is seeing but I'm pretty healthy day to day and I don't know I think like people as well just sometimes like to have opinions maybe out of self importance and kind of don't use tact and yeah, just when someone's in labor, it's never a good time to say anything to them, like just be kind hold their hands, right?
Scott Benner 6:49
If have to be honest, if someone would have said that to me, or my wife and that situation, I would have been like she's leaving that one right there. Get her out. She's got some rock solid orange juice advice here. But other than that, I think I need her to go wow, that's, that's really interesting. Did that stick in your head? Or was the moment so crazy, you kind of were able to let it go in the moment.
Clare 7:11
Um, I in the moment, I let it go. But after my daughter was born, like that stuck with me, because I think just getting the diabetes in pregnancy. And then another nurse told me that I was having an anxious reaction to it, which I was because like, I was terrified, right? When I find out first, my first concern was like, okay, is my daughter, okay? Like, I need to make sure it seems good with her. And you feel a lot of guilt, right? Because you're responsible for this little life that's growing inside you. So I think it was after it was the postpartum period. And then just because taking insulin during pregnancy was so difficult. It felt like I was constantly trying to keep my bloods up. So when people were trying to like you think you take insulin to to stop the spikes to keep your blood down. For me, it felt like that was like the first kind of 20 minutes. And from then onwards, I was constantly eating to try and keep my blood up. And at the time, I had just kind of come off the internet and everything because I was like, I can't look up any more bad news about diabetes, like this is awful. I was looking in the wrong places. And so I kind of my idea of what it was like to live with diabetes, I think was very skewed by not understanding the challenges in pregnancy. And then after birth, just going through the process of thinking that I needed it and then not needing it anymore. And then just kind of watching my blood constantly because I started having hypose After birth, but I couldn't feel them, right. So I had this new like tiny little baby that was in NICU, and she was okay. But when I was like holding her, I put her back in the car one day, and I injected myself with insulin to have lunch and then all of a sudden my Dexcom has gone off saying I'm at 3.6 and I've taken a load of insulin thinking I'm about to eat, and I didn't feel a thing. So for me that was kind of scary, like not knowing and not to see and how quickly like you could drop that afterwards. So that kind of stuck with me the first few months with Ava then I came off insulin completely. But there was always that fear like this is gonna start again and when will it start? And like my quality of life was so gone for the 10 weeks that I had it during pregnancy, there was a lot of fear around that. So then one day, I think they stumbled like I started looking up on YouTube and you know, like different people's experiences with diabetes, but I couldn't find anybody that kind of had the lifestyle that I had which was like a lot of traveling a lot of hiking a lot of drinking wine with my friends. And then I stumbled across Jill on this podcast, and I was like okay, there's a me like I get this and she had just had a baby and every Thanks. So I think it was from then on I started like, learning a lot more about it and you know how you can manage it and that it is manageable. And for me then that was like the starting point of like, okay, things are gonna be okay, because the future is like unknown right now because I'm not on insulin. But I know that like it's around the corner. I just don't know when
Scott Benner 10:20
Yeah, I want to dig into it a little bit. And I want to find out too, just very quickly, Do you by chance live in the fairytale land of do lock? And was that nurse a gingerbread man? Because that's not
Clare 10:31
JB, but maybe it was just all the others.
Scott Benner 10:36
I think I'm just saying that I love your accent really is but
Clare 10:39
I'm going from Ireland. I live in Canada now. But yeah, that's where my accent is.
Scott Benner 10:46
It's it's lovely. And I just and you're in Canada.
Clare 10:51
Yeah, I'm in Canada in Alberta. I've lived here seven years now. So I came here with my then boyfriend. He's now my husband. And we have our little
Scott Benner 11:01
Canadian. They're nice. And Peter Canadian.
Clare 11:04
Yeah, we made a Canadian, she's a little souvenir.
Scott Benner 11:09
You should have just got one of those pennies, you're rolling through the thing and it flattens out makes the token would have been easier, maybe. So I want to just I want to pick through the entirety of this. So you're, you find out that you have hypothyroidism? Have you ever been tested for the antibodies? That would tell you if it was Hashimotos?
Clare 11:31
I don't believe so. With that, like what benefit would that
Scott Benner 11:36
have would let you know that that's an autoimmune issue.
Clare 11:40
Okay, so it's just something I kind of should look out for my own.
Scott Benner 11:43
Yeah, I might want to know, and and you said there's celiac in your family, or do you have it as well?
Clare 11:48
My mom got diagnosed with celiac disease when she was probably in her late 40s, early 50s.
Scott Benner 11:56
So she has an autoimmune. Anybody else? My aunt
Clare 11:59
has Crohn's. That's autoimmune.
Scott Benner 12:01
Yeah, you.
Clare 12:05
I have the thyroid then. And now I have type one diabetes.
Scott Benner 12:08
But your day, but your diabetes doesn't need insulin?
Clare 12:11
No. So it's L A D A, they call it? Yeah. Okay, yeah. So apparently, it's just a slower progressing version of it. I actually never heard of it. Like I always thought it was just children that got diabetes. And there seems to be like varying speeds that it progresses at. So since I found out I had it, there's different groups. And you know, some people are on insulin right away. Some people go years and years without insulin. So I don't know where I fall. I'm on Metformin. Now the last kind of two months, and that's helped when I got my COVID vaccine, my blood started to kind of go off and they never kind of came back down. So the Metformin is helping I do spike, I wear my Dexcom all the time. So I can kind of see you know, that I do go higher than I want to go. But anytime I get my HBA one seed on, it's usually like around the 5.2. Mark.
Scott Benner 13:11
So what's a spike look like to you? Is it usually after meals or not necessarily?
Clare 13:16
It depends. So if I had like oatmeal on its own, I'd probably go up to maybe like 12 or 13. If I have like a little bit of oatmeal with like peanut butter, and I have some Greek yogurt, I'll probably stick around like the seven or eight, and kind of come back down and probably like sit between five and six
Scott Benner 13:36
here. Because the 13 is like 230. I'm trying to make sure everybody understands the sevens about 126. And a five would be 90. So if you eat certain foods, you go up to a 13, let's say how long does it stay up there?
Clare 13:51
Not long. So I think like the longest I've ever been like pretty high, like maybe a 14 would probably be like two hours. And then it just it comes right back down by itself. So where I'm at now is like I kind of know what to avoid to keep my blood in range. And I can do that, like I've gone through everything because you heard some people say and like this was hard, as well as like go low carb. And for me, especially now because we want to have another baby, I'm really nervous about the fact that I'm not on insulin because I don't know what's going to happen those first weeks and there seems to be a lot of stuff out there. Like if you eat low carb, it's really good to prolong your honeymoon, it'll you know, help you and then there's other people saying well, low carb is really bad if you're trying to get pregnant. So I'm kind of just somewhere in the middle right now. Like I would eat I think like a moderate amount of healthy carbs. And then I obviously just have treats like the odd time I'll have like a couple of beers or ice cream or something knowing that that will spike me but that it will come back down pretty quickly.
Scott Benner 14:56
Is the plan that one day when it doesn't come back down quickly you start using insulin.
Clare 15:01
Yeah, I mean, my endocrinologist has been really clear with me that like insulin is definitely in my future. It's just that she doesn't know how far away that will be. She said, like, because I got the autoimmune like the antibody test on so I have the guard antibodies. So she said like, it's just a case of time, but they don't know like, that could be 10 years, it could be a year like there's no way to tell.
Scott Benner 15:26
Right? Okay, what made you want to come on the podcast.
Clare 15:33
The big thing for me was because like, I was so distraught, just because of how how I felt on when I was pregnant with the insulin, like, I felt feel like at the time, like I couldn't exercise I couldn't, you know, do all the things that I wanted to do, because my blood was just constantly going down. And I really felt at the time that like, Oh, God, like, my quality of life is gone, like, what am I gonna do? It took me like one recommendation to hear the podcast, just to kind of have a change in perspective and understand that like things were going to be okay. So I think just for me, like there might be somebody, there might just be like one person out there in the same situation. And maybe they just need to hear that someone else has been through the same thing or find something like relatable between our stories and just kind of know, like that there's support and that there, there is like a light at the end of the tunnel, like being pregnant isn't the best time to get diagnosed? I think with anything. Yeah. You know, and especially because you go through all these like postpartum issues as well. And at the time, you don't realize that your hormones are going completely crazy. And but just I think it's just really helpful. And anybody that I hear of now that, you know, I know that they have diabetes, or that they're struggling with diabetes, I'm like, You need to listen to the Juicebox Podcast, like just listen to it. And you just, I just, I don't know, I think it's like before diabetes, like you'd really want to meet like a rock star, somebody famous. And I'm like, Oh, my God, I get to meet like, the owner of the Juicebox Podcast, like this is amazing, right? Like, you're like Barney. Oh.
Scott Benner 17:11
Well, I appreciate that. Because Because you're Irish. And because you said Bondo. That seems like it's a big deal to me. Well, thank you, I, it's an honor to meet you as well. I'm very happy to hear your story. And I, I want to understand a little more. So 26 weeks, what's the first sign that make somebody think you have gestational at that point.
Clare 17:34
So looking back now, I would wake up in the middle of the night, thirsty, maybe for about two weeks before I went to the doctor. But I had two colleagues around me at the same time that were pregnant, and they were thirsty all the time. They needed to pee all the time. They were tired all the time. And so I didn't really know anything, like I wasn't tired. I had good energy. When I say I was thirsty, it was like I'd wake up in the middle of the night once need to go to the washroom and drink water. And that would be me fine until the morning. It was the itchy legs that kind of sent me to the doctor. And he it was honestly all by chance. Like he thought it was something to do with my liver. And he just said, Hey, get your diabetes bloodwork done at the same time. And then because it came back high, he was like, Okay, we need to look at this further.
Scott Benner 18:28
How much did your legs itch?
Clare 18:30
I'm like, they were pretty bad. Actually. Yeah, I kind of felt like my skin was crawling. And apparently that's like common, there's some condition you can get with your liver in pregnancy that can cause that. But like a lot of people and that's another thing, like just trust your gut, because a lot of people were like, oh, hn is normal and pregnancy. It's fine. It's just part of it. But I think that probably was a symptom of the diabetes just kind of coming through.
Scott Benner 18:55
Were you retaining a lot of water? No, no,
Clare 18:58
no, no, honestly, like the week before I was diagnosed, I was up at 5am in the morning and I didn't get to bed I think until like midnight that night and I was like active like there was I was flying it like I was in the best health of my life. So I wasn't expecting or anything to be going on underneath the surface.
Scott Benner 19:19
Well you got lucky with a doctor being so thorough. So
Clare 19:23
so so lucky. And even just like with my endo because I've I've known of a lot of people since then that are either toll is just gestational and it's kind of forgotten about and I know of an awful lot of people as well that are given the wrong diagnosis of type two. So they spend years kind of battling with diet and you know, trying to sort it out thinking it's, you know, something to do with what they're doing when it's actually just misdiagnosed type one as well. So I was really blessed.
Scott Benner 19:54
Yeah, no, I mean, that's what I keep thinking when you're talking like this guy could have said, Oh, she's probably just retaining water and And you're itchy and whatever. Or you just said, Oh, okay, well, let's go test for this thing that he was thinking about about the liver. And then that would have come back negative and he would have been like, Oh, your legs edge. But instead, man went for it, like just did the right thing.
Clare 20:12
He knew, but so it's really weird because when I got my first visit with him, he was like, so let's talk about your liver. And I was like, What are you talking about? And he was like, Oh, your hepatitis? And I was like, No, I don't have hepatitis. Like, I know I don't I've had the injections. Like I've traveled all over the world. And but he was actually like, a consultant like a specialist. And I guess somebody messed up a blood results, and got confused. So I landed in with him, so it was just funny how it worked out that he was a specialist in pregnancy with conditions. And that's probably why he picked up on that as well. So quickly,
Scott Benner 20:51
did they say cholestasis? When they were talking about your liver? Maybe I can't even remember the only thing I can find while you're talking kolesar c h o l e s t a s is of pregnancy is a liver condition that occurs in late pregnancy conditions apparently
Clare 21:10
it's common. Yeah,
Scott Benner 21:13
intense itching without a rash. How about that?
Clare 21:16
Yeah. So well then it's your first pregnancy so you've no idea what's going on. Like you're really just kind of on a wing and a prayer right? Yeah.
Scott Benner 21:23
But it's so when they get your blood sugar under control. So when they get your blood sugar under control to the itching go away?
Clare 21:33
Yeah, it did it did when I was on insulin. And it hasn't really come back I had it back for a little while and postpartum but I think that was just hormones. Like just dry skin.
Scott Benner 21:44
Okay. So once he gets this test back, he starts you on what what what's the medications like? Use a Basal insulin or just a long acting
Clare 21:56
on faster actin? Yeah, so I met with the endocrinologist in the hospital the same day. I think when I was diagnosed my HPA once he was like a point eight.
Scott Benner 22:16
Look, if you're anything like me, you eat like a monster, a garbage monster. And then you lie to yourself and you say no, I fine. Well, I realized one day, that's not true. And I should stop acting like it is. If I'm not going to eat the way I'm supposed to. At least I could take a green drink. That would help me and I tried a couple and they tasted like hot garbage. So I stopped doing it until I found ag one from athletic greens. And I'm sweating. I'm sweating on a stack of Bibles. It tastes good. And trust me if it didn't, I wouldn't be able to drink it. I am that person. Anyway, ag one is lifestyle friendly. Where the Eat keto paleo vegan, dairy free or gluten free. It has less than one gram of sugar per serving no GMOs, no nasty chemicals or artificial anything's. It supports better sleep quality and recovery. And I take it because I don't think I'm getting enough vitamins in my diet. To make things even more interesting for you athletic greens is going to give you a free one year supply of immune supporting vitamin D, and five free travel packs with your first purchase. All you have to do is visit athletic greens.com forward slash juice box. Again, that's athletic greens.com forward slash juice box, take ownership over your health and pick up the ultimate daily nutritional insurance. That's what I did. You could do it too. There are links in the show notes of your podcast player. And links at juicebox podcast.com. To Athletic Greens touched by type one and all of the sponsors. When you use my links, you're telling the advertisers that you found out through the podcast. And when you do that, they keep buying ads and when they keep buying ads, I get to keep making the podcast and you get to listen to the podcast for free in that great athletic greens.com Ford slash juicebox touched by type one.org a second ago when I said that's what I did. And you could do it too. I heard the Tony Stark quote from the original Iron Man movie. That's how that did it. That's how America does it. And it's worked out pretty well so far. Anyway that has nothing to do with this. Let me get you back to Claire
Clare 24:24
when I was diagnosed my HPA when she was like 8.8 So like not like hugely over I think they say like dunk over seven when you're trying to get pregnant, I believe is what you're kind of tools. And so they started me on long action, short action right away. And my goal was to get under 6.8 mm oh well, two hours after eating. So like I would eat my blood would spike but as long as it would come under the 6.8 after eating I was told that was okay, but now I'm kind of like, like I didn't know by Pre-Bolus And I didn't know about like, there was no kind of you know, play around with your insulin like figure it out yourself and I was very much just kind of like doing what I was told but then constantly feeling like I was trying to keep balls in the air that was my blood sugar and it was just it was always dropping like I couldn't I remember one day just even going across the road to go into winners and I was finally in the office. And then I was having like a Hypo before even got to the door of winners. So that's it was just like constantly up and down. There was no balance.
Scott Benner 25:33
Can I be honest with you for a second? Yes, Your accent is so delightful that I have trouble even wanting to ask you a question. I'm just so happy listening to you speak. And I know that this is not something you're aware of. But some but you're listening. You're not the first person I've spoken to with an Irish accent right? My favorite thing about it is when you say ah ba one C because it comes out hey ah ba ba and see like that God say for everybody right now.
Clare 26:01
Hey, HBA one see,
Scott Benner 26:03
I love it. It's my favorite thing.
Clare 26:05
That's hilarious because I think I sound like a 12 year old like me voices. So I
Scott Benner 26:10
guess it sounds like you're about to grant me a wish in a field. Right? Yeah. Oh God. But, but it's the hit like if I just spell it. It's like H AECH H. And then the B is like B E but it goes on forever. And then the a one C comes out very quickly. Do it one more time.
Clare 26:32
haich D A one see my best thing you've made
Scott Benner 26:35
my whole day. Thank you for I don't even care if your story's true at this point. Although What an odd thing to make up. Right, yeah. So you make it through the last month of the pregnancy pretty well, I guess their expectations were, I'm guessing that they're not going to teach you the ins and outs of diabetes that that much and you've only got a couple more months to go. And that they probably imagined that when you're I don't know, they're not thinking, are they thinking Lada? Or are they? Are they thinking type one at that point, like I'm trying to figure out when they get here,
Clare 27:10
they didn't really know like, they had no idea what would happen and yeah, they weren't because the first hypo that I had was really horrible. And I didn't know like what to expect and and frightened to me. So for a long time, I was more afraid of hypos than spikes. Yeah. And so I think, you know, like, the nurses were really supportive, and they kind of just kind of got me through at a safe level. And we knew that my daughter was okay. You know, she wasn't like too much overweight, like, Thank God, all of her Oregon's like, everything was fine. And so they just got me kind of through the pregnancy, the labor was really easy. Like, I didn't know any different. They just hooked me up to a drip. Like, I didn't even look up my blood sugar. They were monitoring it, and it was fine. And, and then after birth, my blood was spiking when I was eaten. So they had me, you know, oh, so that's the other thing like towards the end of pregnancy, my insulin resistance, obviously, like just dropped, so my insulin needs dropped. So they brought me into the hospital thinking it was a placental failure. But I guess it was just that towards the end of the pregnancy, you don't need as much insulin. And so I think I was like, down to like one unit of long acting. Yeah, that's
Scott Benner 28:23
been everybody's story so far right as it as it begins to end, and then boom, a lot of the ladies say that as soon as you deliver the placenta, your insulin needs change.
Clare 28:33
Yeah, so that was and then but I went straight back on insulin after birth, because I was eating and my blood was spiking. And then all of a sudden, a couple of days later, like I was just going low all the time. So they took it off me completely. And I still like I go through phases, like I'll go through like maybe a couple of weeks where my blood just retire like after my COVID vaccination, it was running higher. And you know, if I'm sick, I run higher. If I'm stressed, I can run higher. So it's kind of just like riding the waves and just kind of see kind of what happens
Scott Benner 29:06
to me again, in the process, where did the antibody testing happen?
Clare 29:10
Right away, like literally the day that I went into my endo because they knew just because of the autoimmune diseases and then she also said, just kind of by looking at me, I didn't like I was pretty slender. And so they kind of thought like, just to search for type one right away.
Scott Benner 29:27
No, and I remember you saying that now. It just It slipped my mind first. You really are you have me at a disadvantage. Because I if we went on a date, I would just be like, Oh, it's fine. Claire, say whatever you want. I'm just gonna sit here. I have a hard time wanting to even speak while you're speaking. English. My husband felt like he's not gonna do that. But that's a cause to him. You sound like his mom. Probably.
Clare 29:49
I probably do. Yeah, there's a lot of Yeah.
Scott Benner 29:54
Yeah, to me, it's just delightful. I you know, I feel like Shrek and Donkey are gonna walk out of the woods. sooner we're all gonna go on an adventure together. It's really fantastic. Yeah. It's wonderful. The Metformin, when did they like when did that start?
Clare 30:10
That started two months ago. So just Yeah, after the COVID vaccination my bloods kind of yours just sticking around like the 10 Mm, oh well Mark constantly. And that was maybe kind of for a period of two weeks. So they were my endo was just open to try and metformin because it kinda like it has helped other people with La da. And it has helped me like I definitely I'm back in the range I was before starting it and I even kind of eat like I'll get away with having a slicer tools on its own now, whereas beforehand that would kind of Spike me so I haven't had any side effects with it or anything, it's just been easy for me to take
Scott Benner 30:53
he went, he went right to the Metformin, he didn't say maybe more insulin, or did you not use more insulin because you're still experiencing times when you don't need it.
Clare 31:02
I'm still experiencing times where I don't need it. And also, like, I don't really, I want to avoid going on insulin just for as long as I can. Like, I have a really busy toddler right now like she's running around everywhere. I know that if I started on insulin now like my blood still goes like there's sometimes my blood is down like at five or like 4.8. So I just feel like, I'd rather go on insulin with my blood is higher than I kind of know that I needed. And maybe I don't have to deal with hypose as much because they kind of frightened me a little bit.
Scott Benner 31:39
It's interesting, isn't it? How this process changes you because a 4.8 is an ad six. And if I was wearing a CGM, and my blood sugar was always at six, I'd be so happy. Yeah, right. But it's
Clare 31:53
not always like it'll go there for a little while. And then it's usually kind of around the five and six mark.
Scott Benner 32:00
Right. But your your concern is I'm imagining that if you were using insulin, you would, it would be difficult for you to maintain this, this 4.8. And that you might get start getting low at a time where you're trying to raise so you're just kind of trying to cheat the system for a little while, right? Like,
Clare 32:17
why not cheat the system for a little while, like I just I want to, you know, like, learn how to be a mum first when my daughter like that was the biggest thing as well after birth was just not having to manage learning about insulin whilst trying to learn how to be a mother. That's kind of where I was at. And just like the freedom as well, right that I have now like, go go for drinks with my husband. And like, I know that once I start insulin, there'll be a learning curve there that I'll have to learn how to navigate all those different things in my life. So yeah, that's kind of like, the longer I can avoid it, the better.
Scott Benner 32:55
So are you? What's my question? It seems like you're in a really interesting place, right? Because someone's told you look, at some point, you're gonna have type one diabetes full blown. But for now, it's it. I mean, it's Lada. So it's taking forever and ever but one one day, you're gonna have that that insulin need. Is that comforting? And you're slipping into it slowly? Or is it upsetting, and you wish it would have just come on all at once, three years from now.
Clare 33:26
After the birth of my daughter, the first six months, it was really upsetting because I had my CGM and I was always watching my blood go off. And if it spiked at all, I was kind of thinking oh my god, tomorrow is going to be the day tomorrow is going to be the day I'm not ready. Now I've just gotten more used of the idea of it and and kind of grateful for the time that I have now that I don't have to kind of stress about it. Yeah.
Scott Benner 33:55
How long did it How long did it take for the panic part to go away?
Clare 33:59
Oh, gosh, like a good six months after and my daughter was born for sure. Like because I felt guilty for her as well. Like I was struggling with nursing and then oh gosh, some other nurse had said to me like you know if you breastfeed like it's really gonna help like her maybe not get diabetes down the road and that kind of thing. And of course, like I believed that straight up so I killed myself to make sure that I could nurse her and so I just yeah I'm the fear as well around her getting it was kind of was pretty strong. But I think as well, you know, that's, I might have never had diabetes and still felt like that like that could have just been postpartum and the middle of the pandemic, so, but I definitely think like, it just makes you stronger as a person as well and more appreciative like one thing I'm very glad about is that I know how vulnerable your health is earlier on in life rather than finding out about something when you're 60 or 70. Like I try to live more purposeful now and I kind of tried to Appreciate what I have rather than kind of worrying about silly things. And so yeah, I don't know. Like, there's good and bad to it.
Scott Benner 35:09
Yeah. Were you breastfed as a baby? No, no. I see.
Clare 35:14
No, I wouldn't have been. But I mean, like, once I kind of realized that, like, Look, if breastfeeding George diseases like, half the population wouldn't be sick, right? Yeah,
Scott Benner 35:25
there's that thing, right? Like, it's everywhere. You know what I mean? Like, you see, like, I don't know, you see something or like, yeah, there's this tea drink every all the famous people in Hollywood drink. It's why they're so thin. I'm like, well, that if that was the answer, you just think we all don't know about that. Exactly, exactly. Not that it's wrong to do. I mean, breastfeeding is wonderful. It's just to your point. It's not it. I mean, there are plenty of people in the world who have diabetes and were breastfed. So
Clare 35:53
exactly. So. But yeah, and then after that kind of six months, I kind of got a little bit more used to but I do get nervous. I have bloodwork coming up now next week. So I always kind of get a little bit anxious about that just beforehand to see like, Is this the time that I'll go back on insulin? But I don't know. Like it is what it is, right? There's definitely worse things to have.
Scott Benner 36:16
Yeah. Have you reconciled yourself with the fact that the big shift hasn't come yet?
Clare 36:23
At moments, yes. And then there's other moments that I panic, and I'm like, I'm not ready, I'm not ready. So I'm like, I tend to kind of overvalue things. So we're going on holidays back to Ireland soon. And I'm like, this has to be the best trip ever. Because this might be my last trip home without insulin, and I kind of turned them into, like, you know, put too much pressure to make them into really big good events, and then I just kind of need to talk it out with my husband, and he's like, look like, you're still gonna have the good holiday on insulin, like, you're still gonna do all the things you want to do. It's just gonna be a learning curve. So yeah, it's just, I mean, I think that's just human nature as well, right? Like, you get a bit panicky about the unknown.
Scott Benner 37:04
It's funny how we ascribe like, I don't know, like it was better here, or, you know, I want to do it this way. Without that, or I mean, that's just an interesting, you're gonna have plenty of holidays, they're gonna be just as wonderful as the one you're about to have. And you'll, and you'll have them and you'll be, you know, you'll be using insulin and have type one. And it'll be the way that you know, other people think of it, you'll be using basil all the time, and injecting for everything you eat, and, and you're still going to have a wonderful vacation.
Clare 37:35
That's it. And I think that's where the podcast helped as well, because my version of diabetes was always just up and down, up and down, up and down. So then when I started listening to people's stories, and seeing that, like, they could live their day to day lives and just stay steady. I was like, oh, it's not actually what I think it is. Right? Like, I didn't actually realize that it was something you could have a totally normal life with. Like, when I was pregnant, I thought, Okay, this is it, I literally just have to try and keep my blood up for the rest of my life. Like, that's what I'm gonna spend my time doing. But I didn't realize like, there was hormones at play. And there was all these other like, skills that you could do like Pre-Bolus and and just reducing your basil if you're exercising and all this kind of stuff, ya
Scott Benner 38:19
know, it's, it sucks. Because because that is at its core right now what diabetes is like, once you get type one, and you're given insulin, and someone doesn't tell you how the insulin works, you're already mismatched, you're unbalanced, right? Like, you're gonna see spikes and crashes and spikes and crashes. And then that only has to happen for a certain certain amount of time before you accept it is your reality. And then if you don't have a physician who will step in and say, no, no, no, it's it's not it doesn't need to be like that. We just have to, we have to move some things around here and make it work better than that's it you often live your life like that. And you can spend that is, I mean, you've watched it over and over again with people who have come on who've had diabetes for decades. It's it's draining it takes it out of you, and eventually you lose your fight. And then
Clare 39:10
that's like what I couldn't imagine because like we were backpackers, like we love traveling to like far flung places. And I at the time as well, everyone was like, you know, you're going to be a mom, like, Oh, this is going to change but that wasn't registered. And in my head, I was like, how am I going to go to like South America and like, carry my insulin and be up and down all the time and not be like I really thought like, Oh my God, my life has changed forever. Yeah. So then it was kind of just when I went on, I think as well like on the internet, like there's a lot of bad stuff and a lot of you know, stuff you should just stay away from like it was so refreshing to just find the podcast and hear people that had strategies like actual strategies to get over the hurdles and there was something you could do about it. You just weren't listening to people. Like complain about how how hard it was like there's ways to fix it. So I think that was really helpful.
Scott Benner 40:04
Yeah, I think in fairness, I take your point, and I agree with you. But in fairness to the internet, everyone's just exchanging their experiences, right? They're just saying, This is what's happening to me right now. And you know, we just talked about it a second ago, the up and down nature and not knowing how insulin works. And that feeling faded completely. Like this is just what's going to happen. That's, that's people getting into that spot, and then going out online and being like, I can't believe this is what my life is. Yeah. And the problem is the next newly diagnosed person that sees that thinks, oh, we'll see. That is what diabetes is. Yeah. And then there's a different group of people who I'm trying hard to influence, which, you know, I want them to say, oh, it turns out if I Pre-Bolus my meal a little better understand how insulin works, or how fat impacts your blood sugar like these things. That doesn't need to be the case. I mean, you're still putting in all the same work, you just have to put it in different places. So you get better outcomes. It's just, it's just the nature of the internet. So you can't be not that you're mad, but you can't be upset that people share their, their wonky experiences, because it's the same platform that allows me to share my experiences.
Clare 41:16
Yeah, it means be helpful. Maybe like when you get the little booklet that you get from the hospital, like the first line is just like go to the Juicebox Podcast. That would probably just help everybody.
Scott Benner 41:28
Theory. Nice to say that if you would just use some of your LepreCon magic and make that happen. Sure, diabetes. Yeah. You don't seem willing to do that. So it's fun. Where what are some places you've hiked that you just were like, Oh, I can't do this anymore.
Clare 41:43
Well, because I would like go low just by walking like, we're where we are in Alberta. We're right beside the Rocky Mountains. So we we would hike up there a lot. Like we are for our honeymoon, we were in the Middle East. And like I remember reading about Syria, we we visited Syria when we were going through there and just like people, like if you have diabetes there, you most people don't have access to insulin, like they don't have access to the care that they need. And I just like that hits you as well. Like, especially when you have a child and you're like, oh my gosh, like I'm so lucky that I live where I live that I have access to you know what I have access to because there's people I get agents like That's disgraceful in this day and age as well, that there are people that don't have access to the care that they need to help them with a disease. It's like all over the world. But for me, I was like, Well, I can't imagine go back to these places on holidays now, but yeah, we'll see. I mean, I've a toddler now. So I can't really imagine going anywhere on a peaceful holiday.
Scott Benner 42:44
It's not gonna happen. Yeah, it's your life's over. I mean, you understand, right?
Clare 42:50
Like, I was like daydreaming I was like, Oh, I'd love to be by a pool in Mexico. And I was like, No, that would actually be horrific.
Scott Benner 42:56
Think of having a baby, as a job that lasts like, I'm gonna say, like, 25 years at its real core. And that you're always thinking like, oh, I can't wait till the weekend comes. But then the weekend never comes. Right. And then one day where I'm at right now, believe it or not, I'm there. This is the weekend for me. My son is graduating from college in three days. And you're probably heartbroken. Oh, it's a whole thing's terrible. First of all, you shouldn't be this old and this shouldn't be happening. And I don't want him to leave and go places and all that stuff. That's not my point. My point is, is that if I'm at the weekend, I got there, right. I had a baby. 22 years ago. I've been waiting for the weekend. The weekends here. It's still not a weekend. It's still not. Yeah, the weekends never coming. Unless you're gonna go get loaded somewhere and check out and ignore your children. This is the game Claire. So that's
Clare 43:49
not gonna Yeah, no, I wouldn't change it for the world, though. Like it is. It's the best thing and even knowing like, if I was to do it all over again and know that I was gonna get diabetes. Like I would do it 100 times over.
Scott Benner 44:01
I agree with you. I would I would as well. I mean, do you think the pregnancy threw you into the Lada?
Clare 44:09
Like, nobody can tell me like, I know that my blood work was normal in previous years. I guess. Like, I mean, you pee on a stick, like 500 times when you're pregnant, right? Like nothing ever came up about high blood sugar. So I really don't I have no idea. Like maybe it was just there in the background. I know your incident requirements go up when you're pregnant. Or maybe the pregnancy just triggered it like I don't
Scott Benner 44:33
know. Sure. It's funny. I mean, we don't think of it that way. Like some some people get gestational and then never develop diabetes afterwards. So yeah, so yeah, I don't know. It's an interesting thing. I'm gonna have to see if I can find out I mean, we talked about all kinds of other things that you know, move your move your immune system towards, you know, doing the wrong thing. I've never heard anybody say pregnancy before, but maybe yeah,
Clare 44:57
I don't I have no idea. I'm interested like I I'm interested to see what will happen my next pregnancy and like what that will look like after as well. But I think you just kinda, we'll just have to figure it out as we go along.
Scott Benner 45:11
Yeah, I see you're gonna do this again.
Clare 45:13
Oh, I'm gonna do it again. Yeah, definitely. So yeah, I don't know, like, I know that the first kind of few weeks of pregnancy or, or the critical part just when the organs and stuff are forming. So I've gotten ginger, I forget her second name, but I've gotten her book about diabetes and pregnancy. So I'm studying that. And I'm trying to prepare myself and we'll just hope for the best.
Scott Benner 45:37
Yeah. And, and Jenny's the co author on that book, I believe.
Clare 45:42
Yeah, yeah. So I know, like, I might actually reach out to them and just see if they've had any similar kind of patients that take might be able to help me along a little bit to navigate it. And but yeah, it's just I suppose it's just totally out of control. Like I don't know if my blood sugars are going to stay as they are early in pregnancy, if they'll go high, if they'll know. But like, my endo was really good on my diabetes educator. They're a phone call away all the time. So that's reassuring.
Scott Benner 46:09
Are you have you had that thought? Like, should we sneak a baby in right now before this thing goes haywire? Or would you prefer that you had kind of full blown type one and you knew how to manage it before you got pregnant? Um,
Clare 46:23
I think we're gonna, so I'm gonna wait till we come back from Ireland because they don't want to be in another country and having to navigate it. And then we're probably going to because I'm 35. So I don't want to wait, like too much longer. And I think I don't really have a choice. Like I'd probably prefer to be on insulin and navigate in it and understand it, but I'd rather like I want another baby. It took us a little while to get pregnant with my daughter now, so I don't I don't know how long it would take. So we're just gonna jump right into it.
Scott Benner 46:55
Oh, does that that's not a euphemism. You mean it? You're getting right to it? Yeah. Wow. Well, good for your husband. I mean, that's nice.
Don't know, I the last time we made a baby. It happened so quickly. I felt ripped
Clare 47:14
off. Like he just sneezed and it happened.
Scott Benner 47:18
I was like, come on. That's not fair.
Clare 47:21
Yeah, right. I've heard a few people say that.
Scott Benner 47:24
This felt like a shakedown to me. I was like, nevermind, even if we just started a number of days later. I might have at least gotten a month out of it. You don't need me. Yeah, yeah. was just too soon. Boom. Pregnant. Great. Perfect. All right. Well, anyway, I'm waiting for that weekend to come back to it's not coming either, Claire.
Clare 47:45
No, no. Here's to tired all the time.
Scott Benner 47:49
Oh, well. That sounds like your response. I understand. I don't feel that way. There's nothing that I could never be too tired. Claire, do you understand what I'm saying?
Clare 48:00
You can never be too.
Scott Benner 48:03
I've tried to explain before. I think it's been a long time since I said this. But if I was in the middle of a mall, and my mom was there, and my wife was like, Do you want to have sex? But we have to do it in front of all these people, including your mom. I'd be like, Yeah, sure. Oh, God. I'm sure I really wouldn't need to worry about that scenario. I'm sure I really wouldn't. But I feel like I could is what I'm trying to say. Nevertheless, it's over now Claire, I'm old and the boys old and the girls old Arden's go into her prom this weekend. And
Clare 48:36
so crazy. It just goes by so fast. Like that's the thing that I can't believe about it like one second, you've got a little baby curling up in your chest, and the next minute, they're, I don't know, like trying to drink out of the toilet bowl or whatever. You're crazy.
Scott Benner 48:52
Well, I can I can share with you that a couple of weeks ago, my son played his last undergrad baseball game for college like he might keep playing after this. But it was his last college baseball game of his you know, his undergraduate as first four years. And the next day I woke up Saturday. He's still at school, and I'm at home. And I'm distraught, like genuinely distraught because he's been playing baseball since he was like three. And now he's 22. And the end the season ended on a day they didn't think it was going to end on SO. His last at bat, for example, I didn't know was going to be his last at bat. And I found myself thinking like all the bizarre things that people think like had I just known I would have. I don't know I would have watched it differently or like I don't even know what I would have done but I felt like I didn't do the right thing because I wasn't aware that it was over. And no
Clare 49:49
it's the pairing felt like you feel like you wish I remember when a like my daughter was little I would wish away the middle of the night. It's like you'd be up for hours you'd be crying And then it's over. And then you're like, oh my gosh, like, I wish I knew that was the last night or like, I wish I could have this back again at the time. You're just trying to get through
Scott Benner 50:09
it to your exact point, Claire, if someone woke me up at two o'clock in the morning tonight and out of a dead sleep, and handed me a six month old Cole or Arden, it would be the best thing that ever happened to me. Yeah, you know, it's crazy. So I'm so I go for a ride the next day to kind of try to clear my head. And on my way home, I passed the field where my son played baseball when he was little when he was six years old. And it's a park and I pulled in. And I kind of sat there from and I got out I went for it was a nice day, I went for a walk around the fields. And I must have lingered, because I'm going back to my car. This gentleman says to me, can I help you? And he was there with his kid getting ready for a baseball game. And I said, No, I just saw my son just played his last baseball game. And I'm just here remembering when he was six. And I pointed to a son as like your, like your son's age. And I said, I'm gonna say something completely just trite to you that I said, it goes so much faster than you think it's going to. Yeah. And he's like, I know people say that. And I said, you don't know. You know, like, I don't I must have sounded. I don't know how I sounded to be perfectly honest. I said, I know. Like, cognitively you think you understand what I'm saying? But you don't. And you're going to be standing here before you know it where I am. So um, you know, I didn't say this. But I in my mind, I was like in hell, I'm gonna be dead. You know, like, like, by the time that kid that guy's kid is playing his last college baseball game. I'm gonna be like 75 And try not to pee before I get to the bathroom. So anyway, the whole thing sucks, Claire. That's what I'm telling.
Clare 51:54
It's so crazy. Like you spend so much of your life just wishing time away. Like you're always wishing for the next best thing. And then like, all of a sudden, you're like, Whoa, wait a second. Yeah,
Scott Benner 52:04
time and reality, don't dive in. Like, you can't make sense of them together. So and you're never going to know until you know, and when you figure it out, it's going to be too late. So
Clare 52:17
that's a one thing like with the kind of silver lining is that I do appreciate life a lot more now in the little things. And just you know how important it is to take care of yourself and like, like, treat yourself well. And don't always be like, wait until you get to the next day. The next best thing or the next big thing, like just take it all in because like it just kind of taught me to like value my health a lot more as well.
Scott Benner 52:42
Yeah, I think that people imagine that there's something better or more complete over the horizon. Yeah. And then every time they get to the top of the hill, they see another hill.
Clare 52:55
You just keep moving the goalposts on yourself.
Scott Benner 52:57
Yeah, yeah, I guess one of the best ways I can explain it is, I feel fortunate that I had to hold Arden's hand so much in the middle of the night to check her blood sugar. Yeah, because I got to see your hand get bigger over time. Yeah. And it's not so
Clare 53:15
lonely. Yeah. To be so proud of me. Now. I love him. Because anytime I hear anything about little kids or anything, I always just get so emotional. He's always laughing. I'm even I'm like the law of like, your heart just expand so much like it's crazy.
Scott Benner 53:28
It's an experience that people don't have. And I only have it because of diabetes. Yeah, that's it. I've held my daughter's hand, probably almost every day of her life. And, and I've noticed it get heavier and her fingers get longer and it changed and look more mature. And it's an experience I have that other people don't get and most of the people listening to this podcast get to have that experience. But I wonder if they appreciate it.
Clare 53:57
Is it scary for you now seeing her go out into the world like with the diabetes as well or, like I can't imagine my daughter going into the big bad world, let alone kind of having something to manage like that all the time.
Scott Benner 54:11
I'm excited. Because I think she can do it. And I'm a little I'm a little confident because I think I can help her if she can't. Yeah, you know, and she's so like, you really don't know Arden but she's so like forward in a good way. Like she's moving forward constantly. And doesn't matter if she's got health problems or if things aren't going well. She doesn't sit back and curl up in a ball very often like she she's moving forward. She's this thing she's excited about. She's excited to go see if she can learn it like she actually picked something to go to college for that. I don't know that she's 100% Certain is going to work out But she's gonna go try. And my only concern at this point is that the things that she doesn't know about diabetes, because they only happen when she's asleep, that I, that there's no good way to explain them to her like, I'm still looking for the way to explain to her that once a month, for reasons that I still can't nail down her blood sugar goes into the 50s. And it won't move. Yeah, and that I have to give her more carbs than normal to get it back up. And that this is a thing that happens at two o'clock in the morning. And she's going to need to do that, and then she'll be tired the next day. And that if she over treats the low, it's going to, it'll ruin the entire next day. And like, like, I don't know, if I should just let her experience it, and then hope that she adjust to it. Or if I should try to explain it to her ahead of time, I think I'm going to try to explain these things. So at least when they happen, maybe she's like, Oh, this is the thing he talked about with the getting low, you know, or something like that. But overall, I'm not nearly as upset as I, as I imagined I was going to be when she was younger, which is again, what we're talking about here like I was, you know, I think there's an episode of the podcast that I titled worry is a waste of imagination. Because when you're worrying about something, unless it's literally standing in front of you, if you're imagining a thing that you think might happen, and very often it they never happen. And you waste now worrying about later. And then when you get to later, there's a real thing to worry about. That's not the thing you imagined. And I think I did that with diabetes a little bit. And I don't know,
Clare 56:41
it's hard not to do that though. Like I think you need like, um, you're saying about Arden as well and like what a go getter. She is like that's credit to you and your wife as well. Right? Because she got that from somewhere, right?
Scott Benner 56:52
I don't know, you think Claire?
Clare 56:55
I don't know why? Well, I hope like, I don't know, maybe it might be better for my daughter not to pick up on some of my habits now that I say that. Like
Scott Benner 57:02
when my when my wife and I had kids, and we talked about we're young, we talk to each other. And we and we used to we'd be like, what are we what are our goals here for Cole, you know, when he was young? And I said, I just don't want him to be an ass. Yeah, you know, and she's like, What do you mean? I said, I said when a group of people stand together and they disperse, I don't want them to look at him and think kids a dick. He wasn't one. Yeah, like like that's, that's I think that's my, my real thought here is that I don't know where he's going to go or what he's going to be or how he's going to turn out. But wherever that goes, and whatever that ends up being. I just hope he does it. Nicely. Yeah, no, I
Clare 57:45
get that for sure. That would be my hope as well. Right now though, with an 18 month old My hope is to stay keep her safe every day because there is no surface on the house that is safe. She's climbing on everything is crumbling everything trying
Scott Benner 57:58
to run her head in the face. Yeah, just you
Clare 58:01
know, I'm one step away from Robin Hood and bubble wrap.
Scott Benner 58:05
You think she hears you and thinks that lady sounds like a leprechaun?
Clare 58:10
She like she's my many like my husband. Like, I'll be saying something about her. And he's like, yeah, like the Apple did not fall far from the tree. Like, this is your attitude all over. So nice.
Scott Benner 58:20
It's nice. Now when she's like, 17 it won't be as nice. You'll be sitting there going like, oh my god, I sometimes I look at my wife and I just laugh. I think to myself, like Does she not see this in herself? Probably not. Right? You know, or, or whatever it ends up being. Listen to I'll tell you my kids are, are generally really decent people. And it's still very hard.
Clare 58:46
I can imagine. Yeah, you just like it's everything is a new phase, right? You think like, oh, like, the pregnancy is hard. And the birth is hard. And then you're like, No, that's actually not the hard part.
Scott Benner 58:57
You know, I don't know if you heard a few weeks ago, Jen came on. It's an after dark episode. She talked about her son Nolan who passed away from an overdose. And oh, I didn't hear that. And all I could think while she was talking is like, well, this lady got it. Like from all sides. Like, you know what I mean? Like, it's not just the I mean, because raising kids is hard enough. But then you add. I mean, the poor kid had, I think he had bipolar disorder. And he was addicted and and you just think like, how are you supposed to manage that? You know? Yeah. How do you get back? Imagine it's something you know, and especially when you everyone starts out the way you are right now. Look at me. I'm like I'm putting in your head. Your kid's gonna do heroin. I'm not I don't mean it like that. But I'll make you cry clarify on the podcast by Mormon.
Clare 59:44
You Howleen on the podcast.
Scott Benner 59:48
So just draw some lines she's about to she's like 18 months old. Oh, my God. But, but but being really seriously, like Jen had a great outlook and her UPS it's terrific. If you haven't heard it. But I just thought like, I mean, how many things can you stack up against the person to this boy? Like how many things are stacked up against him and then her as a parent? And you know, at what point do you just say to yourself, like, I don't know how to get back from this even?
Clare 1:00:15
Yeah, just the strength that she has to come on and speak about it and like, help other people like it's, I don't know, I can't imagine. Like, what that would be like, ever. Yeah.
Scott Benner 1:00:27
After I got done with her. I thought, I'm so grateful people do this. And I don't know why they do it. Like, there's like, No, I, Claire. I don't, it's may now, in 2022. Just for context, I don't think I can. I just booked somebody on the podcast the other day for 10 months from now. Like, that's how far out you have to go if you want to be on the podcast. And then after you record it, it takes six months for your episode to come out. And there's no shortage of people who want to come tell their stories.
Clare 1:01:02
Well, people probably like you probably don't realize the impact that you have had on people and like, it changes people's life, right? Like, if you go from a place that you're really dark, and you're kinda like, you feel like you're always failing, and you don't have that quality of life to just like, you help people so much. And everyone that comes on helps people. And I think like, people just want to pay it for it because it makes such an impact on their life. Right? Yeah,
Scott Benner 1:01:30
it's wonderful. It really is. Because the podcast is it doesn't exist anymore without people. Yeah. You know, like, it's, I mean, how long? If you hear me back in like, the third season, you'll hear me Muse out loud. Like, I don't know how long I can keep this going. And like, I know, you guys like it, and it's helping you. But I mean, how many things could I possibly say? And it just occurred to me along the way, I was like, people stories are like the core of the show.
Clare 1:01:54
Yeah. And they're relatable. And like, you probably don't realize as well, like, it's probably just the smallest little thing that means nothing to you could change somebody else's life. Right? Like, you know, yeah,
Scott Benner 1:02:07
I see that about about it. That's why I think conversational is the way to go. It's why I think not pre planning. It's the way to go. And it's why I don't give the show specific titles. Because if I make yours, Lada during pregnancy, then only pregnant people are gonna listen to it. Yeah. Right. So and look at all the really like maryada things we've spoken about today. And so I don't know what I'll end up calling this episode. You know,
Clare 1:02:35
not like leprechauns, Shrek parenting advice.
Scott Benner 1:02:38
There's nowhere to go. Claire, you're magically delicious. Maybe I'll just say that. Okay. And so, I don't know. But whatever it is, I won't name this show something that will stop someone from hearing the conversation. And yeah, and I think that I think that you have to just like, there's no lie. 20 minutes into this. Like, I've been making the show a long time, right. And 20 minutes into this or so I thought there's not enough here about diabetes to fill an hour.
Clare 1:03:10
Oh, yeah. Right. Like, it's just, I have
Scott Benner 1:03:12
to learn about cleaning. Like, that's what I thought like, I have to learn about Claire now and see where this goes. Because I mean, it's the only way it becomes valuable to people. Because otherwise it's you coming on and going, Hey, I got pregnant and then it turns out I had diabetes crazy. My blood sugar got low a little bit. And now we're waiting for it to, you know, happen all the way up again. Yeah, I'll see you like was that eight minutes? You know, so, I mean, I really think that it's the little moments that you can't title that ended up being the most help to people. And I only know that because I get so many. I get so much like contact from people, they send me like letters and notes and write to me online and things like that. And the things that they told me they loved. I'm always like, Oh, wow, like somebody heard that? You know, like that. 30 seconds in the middle of that episode. They heard that that's, that's really cool. So everyone needs something different. And hopefully, that whatever they need exists inside of these conversations somewhere.
Clare 1:04:15
Well, yeah, that's the whole point. And like, for me, I find as well it's just like finding someone that is, you know, relatable that has the same, like, we're all just going around living our lives. Like it's just, it's nice to know you're not on your own I think sometimes as well.
Scott Benner 1:04:30
Yeah, no, I agree with that. It's not feeling alone. It's a big part of this. And you're in a scenario where the people who are actually around you, I mean, the likelihood that your neighbors gonna have type one as well or I mean, jeez, where are you gonna find another person with a lotta you know,
Clare 1:04:47
yeah, anybody out there?
Scott Benner 1:04:50
Nobody's coming to Canada.
Clare 1:04:53
I would love to know somebody that was in the same situation as me and then got like pregnant again like for me that's I would love to find somebody that had that story just to, to hear, like how they navigated that, but I mean, it's like finding a needle in a haystack. Right?
Scott Benner 1:05:08
Well, you've come to the right place, because yesterday show is with Susan. And Susan is now very good friends with another person who's been on the podcast previously. And they found each other through the podcast. Oh, cool. So maybe you'll get one. It will find you a lot of pregnancy. That that reaches out and says a little bit. You're not? Are you on social media?
Clare 1:05:29
I am. Yeah, I am.
Scott Benner 1:05:31
Are you going to my group?
Clare 1:05:33
I'm in your group. How come my name is spelt in Irish. So my surname is different.
Scott Benner 1:05:40
That's how you tricked me? Because I tried to look earlier to see if you were very pale and short. And
Clare 1:05:48
I think I'm covered in fake Tom and my profile picture.
Scott Benner 1:05:52
You're covered in white, fake tan tan. Yeah. I have to be honest with you. I did not hear fake tan the first time.
Clare 1:06:01
Oh, Jesus, like do I want to know what you I don't even know what you said. I was like,
Scott Benner 1:06:05
What did she say? And then all of a sudden, I think I thought, I think she said fake tan. I said, Where did I get that from? Oh, my gosh. Well gets good. So when we post your episode, you know, six months from now, you if you want to jump in to that into that thread and say, hey, look, that's me. I'm looking for people. If you're here, maybe you'll find somebody. I listen, there's a story in that Facebook page recently, of a person walking out of a Costco wearing a Juicebox Podcast sweatshirt. And someone looked them in the face and said, I listen to that podcast too. How crazy is that? Yeah,
Clare 1:06:41
it's cool. Like I feel like, even because I ran into somebody the other day, and they were wearing like a Libra and I was like, Oh, I've got my Dexcom on and it's like you just kind of boom. It's a great conversation starter.
Scott Benner 1:06:52
Yeah. No, it's It's the only way you can find people sometimes. So like, like, don't get me wrong if you know if if a guy walking out of a Costco was wearing a Joe Rogan t shirt and somebody else said I listen to Joe Rogan. I'd go Yeah, well, like sort of, like 15 million other people like that makes sense. But just two people who listened to a podcast about diabetes, randomly walking past each other. It made me think it made me think one time my wife asked me, she goes, Do you ever sit in crowded places? And think, I wonder if someone in here would recognize my voice? And I have thought that before? Like I
Clare 1:07:30
were very distinctive voice as well. Like, I feel like Yeah,
Scott Benner 1:07:34
but you only need like, like, even like bigger picture. Like it just is there a person like I make this thing in a room? And I put it on the internet? Is there a person here who's heard it? Like, you know what I mean, and it's happened, like I've been approached in airports and, and places like that before. But it's an odd feeling to look around and think I might be doing something that's valuable for someone in here.
Clare 1:07:56
Might like you are doing like all over the world. Like that must be a strange feeling to think that like you start in the literal room and like now you're helping people the other side of the world that you've never met, right?
Scott Benner 1:08:09
It is an odd feeling. Yeah, I would not be able to tell you otherwise. It's it's I was I was writing with Well, I've become friends with Charlotte Drury, who was on the show recently, and we've been texting. And yeah, and now many, many teenage girls who hear this are like, that's not fair. I want to be I want to be friends with Charlotte. But you can't be I am. So that's it. But we were we were talking back and forth. And she found some stuff I was doing online. She was telling me what she thought of it. And I told her like I said, my overarching goal is to just change the way like people think about diabetes, like Yeah, like people, and then maybe to one day have an impact on how doctors talk to people about diabetes. Like that's how I think of the show like that. If I have like a, like a master plan, it's that. I don't know if I'll ever bring it to fruition or not. But then day to day, I just want to help people. And I think if I can keep helping people day to day, that maybe that bigger goal could maybe come true on day. So
Clare 1:09:15
yeah, it's like the little steps. Hey, to get to the bigger the bigger picture. Well, yeah, you're doing like, I mean, you've helped me and then I've given the Juicebox Podcast name to anybody that I hear of. So I think that's lovely as well that everybody just spreads the word and it doesn't really matter, like how you feel or what support you need. It's just that like, everybody seems to genuinely want to help everybody else. There's no stupid questions. There's no stupid feelings. Like it's everyone just seems to be really supportive, which is, you know, that's the way the world should be right? Yeah.
Scott Benner 1:09:48
No, I'm insanely proud of how that Facebook page works as an example, like, it turns out that if you all like when people listen to the podcast, they get a similar feeling about diabetes than when they Come together. There, there's less of that kind of bad advice you can see online sometimes, you know, and people know when they don't know when they lay back, which is also really helpful. Anyway, listen, Claire, you're right. I'm terrific. I hear what you're trying to say. Thank you. I appreciate you. You're welcome me to go downstairs now to the people who I'm related to who do not think I'm terrific in any way, shape, or form. And one day, that little bundle of joy you raise will probably not care about you. I know.
Clare 1:10:33
Oh, my gosh, like, Yeah, I can't imagine what that's like. All like the the thing that was like, I'm like, bouncing around. And I felt like Peppa songs in my head constantly.
Scott Benner 1:10:44
Okay. Oh, Arden had a Peppa Pig birthday once. But I think it was ironic, cuz she was older.
Clare 1:10:51
She was older. And my daughter is obsessed with Peppa Pig. Like, I don't know why she chose pep out of everyone she could choose. But it's Peppa.
Scott Benner 1:10:58
That's amazing. All right. I want to thank you very much for doing this. I want to ask you if there's anything we didn't talk about that we should have?
Clare 1:11:05
No, I don't think so. Thank you for letting me do it.
Scott Benner 1:11:08
Are you kidding me? This is amazing. I didn't know you were gonna have this accent you made my whole day. For clarity, I believe the episode is going to be called HBA one. See? All right. Okay. One more time just for everybody.
Clare 1:11:27
Hey, HBA onesie. Yeah,
Scott Benner 1:11:29
that's what I'm gonna do it.
Clare 1:11:30
Like I have to hear like myself say it and I record it because I don't know how I'm
Scott Benner 1:11:36
saying, Oh, well, that's the best part of asking you to say it over and over again. Because I think your brain hears HB a one say,
Clare 1:11:43
well, that's like I don't say three. I say tree. Like I think it's just an Irish thing. We've pronounced things differently.
Scott Benner 1:11:49
You said thanks. Oddly, a second ago. Yeah, yeah. Oh, yeah.
Clare 1:11:53
There's a lot of like, when I moved to Canada First, I would be saying where it's people would not know what I was talking about. So yeah, it's funny when you hear hear from people the other side of the ocean, right?
Scott Benner 1:12:07
Hey, real quick. You have a different perspective. Because you lived in Ireland, right? Yeah. Okay. The icy hellscape that I described when I talked about Canada and when I anywhere near being right.
Clare 1:12:21
I think it's colder in Ireland when it's like minus one or two than it is in Canada when it's minus 15 in Alberta, because Alberta is really dry. And Ireland's really humid and wet and the cold goes through you. But yeah, when it's like minus 30 It's not. It's horrible.
Scott Benner 1:12:43
And have you ever seen a beaver just walking down the street or anything like that?
Clare 1:12:46
I know. But there's like deer will cross the road and we get like bobcats and stuff in our gardens. Okay,
Scott Benner 1:12:53
well, then I'm right. Okay. Good enough. I'm right. Let's just say I'm right that, okay. Deer and bobcat. It's minus 30 degrees. Frozen. hellscape. Okay, I've got it. Well, I'll
Clare 1:13:05
tell you a story. Like my dad laughed so hard because in Ireland, there's like lots of farms and there's cows and the sheep and everything. So we were hiking out here one day, and we thought we seen a bear. And we were kind of like, okay, like, it's a bear. Like, this isn't ideal. But we've got our bear spray. We kind of know what to do. It wasn't a bear. It was a gang of cows in the middle of the fart like the forest in the mountains. We had not got a clue what to do. Like we were kind of shimmy and pass them afraid they would attack us. So my dad like laughed so hard when he heard that because I grew up around cows, we mountain cows, just like regular cows. I don't know what they were doing in the middle of like the night.
Scott Benner 1:13:45
Come on cattle and get it together. It was really strange. But yeah, get your cows where they belong. There was someone on recently from Ireland who talked about those long haired cows that lived in the woods near her house. Oh gosh, I don't know what they are. I forget now. She's been on twice. And I love her and I can't think of her name off the top of my head. I'm so disappointed. Actually, you know what? She was on episode 10 originally 10. Oh, yeah, I'm gonna look at her names. It's called Teddy's mom. She's an and I don't think I made the next episode. Easy to find. I don't know if that makes you. If that comes as a surprise to you or not anybody listen, I don't know which one but she was just on in the last couple of months again to revisit because it was really interesting to have her back on. Like she was on the 10th episode of the podcast. Like I made a podcast in 2015. And this woman reached out and she's like, I'd like to be on your podcast and back then try to imagine I was like, I barely have a podcast but okay. And then, eight years later, she was back on the show. Yeah.
Clare 1:15:00
That's so crazy. I'm gonna find that episode and listen to it.
Scott Benner 1:15:03
Alright, anyway, long haired cows. That's what I heard when she was talking. Maybe I'm wrong. I don't drink during the podcast. So I trust my memory on this. So all right, Claire, this was wonderful. Thank you hold on one second. Okay. Sure.
Well, I want to thank Claire. First of all, she was absolutely just delightful. I also want to thank touched by type one and remind you to find them on Facebook, Instagram, and at touched by type one.org. They really are a absolutely amazing organization. And I do want you to go check them out. Of course, athletic greens, right, they make a G one. It's a green drink that tastes good. That's got all the vitamins and goodness in it that you need athletic greens.com forward slash juice box, I use it every day, I actually think you'll like it. And that's why they're a sponsor. So go check them out. Athletic greens.com forward slash juice box.
Hey, I'm doing a survey about the podcast. It's pretty cool. And it just sort of tracks what people think of the show as far as their diabetes and health. Basically, you know, is the show helping you or your doctor is helping you more you know, where you're getting your your best support from? It's a great little survey, we put it together ourselves that already has over 500 responses. And I have not spoken about it yet on the podcast. I've so far just made it available through the private Facebook group. But now I would like to tell the people listening to the podcast to see if you're interested in going and filling out the survey. It's just telling me about the different series, what'd you think of them, your rating, your doctors, the podcast, other diabetes help, this information goes nowhere. It's completely anonymous. If you want it to be, you don't have to put your information in to connect you to it. But that's it. I'm just doing a survey to see how the podcast is going. If the data proves out, we might share it with some doctors offices, show them how the podcast helps people so that maybe they'll take a look at it. And probably use some of the data on social media posts and things like that. We're just trying to let more people know about the Juicebox Podcast and your answers to these questions will help me do that. So now here's the thing, the links a little a little funky. It's yeah, I'm gonna put it in the show notes for you because it's like s dot survey planet.com forward slash WGJV f x dx and all the gear to remember that. So I'll just put the link right in the player for you here. I hope you guys check it out. It would be really cool if you could take the time. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast.
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#823 There are Bugs in Your Belly
Arisha has type 1 diabetes and this is how she eats.
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or wherever they get audio.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends and welcome to episode 823 of the Juicebox Podcast.
Today's guest is a young lady who has type one diabetes, she reached out to me by herself wanted to be on the show, and then just really brought it. This is an amazing episode that probably should be called how Orisha eats, but I just like this title too much. While you're listening today, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise. Please Always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. If you're a US resident who has type one diabetes, or is the caregiver of someone with type one, you can make a big difference by taking the survey AT T one D exchange.org. Forward slash juice box. It's anonymous, HIPAA compliant, not difficult and won't take you more than like eight or 10 minutes. T one day exchange.org forward slash juice box. You can be responsible for moving type one diabetes research forward. And you can do that right from the comfort of your home.
This show is sponsored today by the glucagon that my daughter carries. G voc hypo Penn Find out more at G voc glucagon.com. Forward slash juicebox. I don't know how you get your diabetes supplies, but we get ours from us Med and you could do U S med.com forward slash juice box or call 888-721-1514 Get your free benefits check right now and get started with us med.
Arisha 2:04
Hi, I'm Alicia and I'm 13 years old and I have had type one diabetes for nine years. So it's been almost a decade.
Scott Benner 2:13
Orisha so he's Yeah, okay. Yeah, you're 13 Nine years you were diagnosed when you were four? Yeah. Wow. Is there any other diabetes in your family? type one or type two?
Arisha 2:28
Yeah, my grandpa had type two.
Scott Benner 2:31
So no other type one that that you know about?
Arisha 2:35
Um, yeah, but like, my I think it's like my cousin my mom's cousins like daughter like a really distant relative. But I think she got diagnosed after I did so.
Scott Benner 2:47
Okay. How about other autoimmune diseases, but a Lago stuff like that celiac? Oh, my mom has thyroid. Your mom? Is it? Hashimotos? I don't know. Okay. That's okay. Have you ever heard her call it autoimmune? Thyroid?
Arisha 3:05
I think I think it's autoimmune.
Scott Benner 3:08
Okay. Any brothers or sisters?
Arisha 3:12
I have a brother but like nothing. He has no autoimmune. Yeah,
Scott Benner 3:15
we don't want to talk about him. Is he older or younger?
Arisha 3:18
He's younger. He's, he's gonna turn three soon. Oh,
Scott Benner 3:21
that must be very irritating. I mean, I mean, fun. So. Okay, well, because of your age. I'm just gonna ask you what? Well, let me say this infrequently, but it does happen. people your age reach out to be on the show. It's always a good experience. But I have somebody on who, at 13 years old. A understands that there's a podcast that exists. I assume you listen to it. Right? Yeah. Okay. And then has the thought like, I'd like to be on the podcast, and then goes through the effort of getting on because I don't particularly make it easy for you to get on the podcast. Right? I don't actually particularly make it easy for anybody to get on the podcast, it's part of my secret Orisha. So that's how I know you're gonna be here when it when it's time to do it, because you've worked so hard to get here. But tell me what made you want to do this?
Arisha 4:22
Well, I feel like since I've had type one diabetes for so long, like I've learned a lot of information throughout the years that I would like to like, kind of share that information. Okay. I said it's like helped me I guess
Scott Benner 4:36
firstly, you want to dethrone me, you want this? Right? This is your first try and then you're gonna be like people love me. They'll start my own podcast. I'm not that old guy out of this thing and right.
Arisha 4:48
Not really.
Scott Benner 4:50
What what social media do you use or do you not?
Arisha 4:54
I have Instagram,
Scott Benner 4:55
Instagram, okay. Okay, So you're here to share what you've learned. This will be fun. Yeah. Before before we go into that, how long have you been listening to the podcast?
Arisha 5:11
Um, I think when COVID started a couple of years, like, well, like late COVID. So like when I was in sixth grade, so like, get around two years,
Scott Benner 5:23
how old would you have been? 11?
Arisha 5:26
I'm 1112. Somewhere around there. All
Scott Benner 5:29
right, I find this. This hits me two ways. This news. One perfect mom perspective is I'm super excited that it somehow captured the attention of an 11 year old. And I am mortified that you've heard all the silly, stupid and reasonably inappropriate things that I may have said, your parents are aware that you listen to the podcast.
Arisha 5:48
Yeah, my mom is actually the one who introduced it to me.
Scott Benner 5:52
Now we're getting somewhere. Okay, so your mom's cool? Yeah, yeah. Excellent. All right. How about your dad? Is he? Oh, yeah. Yeah. Yeah. wasn't as exciting when you said about your dad. I mean, he's fine. Okay, so tell me about that moment. Your mom comes to you and says, Do you remember like there's a podcast I think you should listen to?
Arisha 6:15
Oh, yeah, it was like, so in sixth grade, I did like online school. So there wasn't really much to do because you couldn't go out with your friends. So I was like, it was kinda lonely, I guess. But so my mom was like, You should listen to this. Because I think at the time when you had no exercise, because I feel like going to school gives you like a lot of exercise and like, yeah, yeah. So basically, like, I would wake up in the morning, and then I would eat like breakfast and my blood sugar would hit to 250. And then it would go to 40. And like, I guess that blood sugar rollercoaster kinda like didn't help me. So my mom was like, Maybe you should listen to this. Maybe I'll help. And like, Hannah did.
Scott Benner 6:56
That's really interesting. Did you do the fake gym class online? Like I used to see my daughter, I don't know how to explain it to you. She put like the top of her head in the picture. And then she just around like she was doing something like laying on the floor and not actually doing it. Did you do that though?
Arisha 7:12
Well, we just had like, a couple classes like math, science, and like English, that were like that. And then our like, what we call it here are electives. And they kinda just, and you just had to take like, a picture of you doing like jump roping or something. So I would just like take a selfie of me riding with my bike and like, send it to my gym teacher.
Scott Benner 7:34
Can I ask you because I'm gonna have some questions about food as we move on. You're Indian.
Arisha 7:38
Yeah. Yeah.
Scott Benner 7:40
Okay, so do you eat traditionally? Not anymore. Okay, so your mom,
Arisha 7:48
we go. We go out sometimes we eat traditionally,
Scott Benner 7:51
but not that your mom's like cooking? Like
Arisha 7:56
she used to but like it didn't help. My blood sugar's
Scott Benner 7:59
Yeah, well, that's what I was gonna ask about, right, because Indian foods hard to Bolus for right?
Arisha 8:03
Yeah.
Scott Benner 8:05
Did you go the what? I'm, I'm thinking of my daughter's one of my daughter's best friends right now. She is. Her mom still cooks traditionally. But, I mean, I think her mom knows she's losing that fight overall, like trying to keep her kids eating that way. But But artists friend Assange and I, she's basically, I don't know what part of the country you're from, but she's basically like a Wawa subway kind of girl. And like, she just got home from college last week, and she goes to college in England. And she got off the plane. And they drove like directly to a to a Wawa. And she ate there. Like it was fine food. Do you know what a Walmart is? No. Are you not on the East Coast? No. Okay. So it's just, it's like a convenience store that has a deli in it and make some hot foods. Oh, she treats it like it's fine cuisine. It is. It is not, by the way. But anyway, so So you just need kind of what you would consider to be an average, like American diet or you
Arisha 9:11
know, like, not at all like not not that I don't eat not at all, like not at all of the American diet. We like I think after I got diagnosed, we learned a lot of things. Like cuz I remember right after I got diagnosed like my nose, it was like really bad. It was stuffy. And like, I think the doctor even recommended surgery. It was really bad and I couldn't sleep at night. It was like months. So then my mom just started to read some books, and it like and then she was like, Okay, let's try being gluten free. So we tried it and it like really helped. So then my mom would make like gluten free items. But now like you can get like now, I'm kind of vegan. Like I've, I've transformed from being like gluten free to dare I'm also dairy free I'm not like egg free but like I don't eat red meat and that's like helped my blood sugar's like a lot like by a woodsy is a lot lower. So like I realized that gluten wasn't exactly the problem it was mainly like dairy. Okay that like, bothered by blood sugar and and then we started focusing on like gut health and that's like helped my my performance in like physical sports and like academically as well that's interesting just like
Scott Benner 10:32
alright, I want to hear all about this. So you're not you're not vegan? Yeah. You are like, well you eat chicken or fish.
Arisha 10:42
Yeah, we chicken and sometimes fish and then eggs, but we don't eat eggs as much because my brother is allergic to eggs.
Scott Benner 10:51
Interesting. Alright, so your brother has some allergies too? Are they just food allergies? Or does he just egg? Oh, really? Nothing else.
Arisha 10:57
It's nothing else.
Scott Benner 10:58
So if he's only pretty so little.
Arisha 11:00
Yeah, it's not like that bad. Like, if you put an egg in front of him, he's not gonna have a reaction. It's like, I feel like if you give him like a whole egg or like, give him a little bit the next day he'll wake up with like a fever. So we'd like avoided as much good
Scott Benner 11:14
thing you won't be ending up celebrating Easter. I mean, what a horror show for that little kid. wherever he's running from, that's where the eggs are hidden now. Okay, so your little brother has an egg allergy. Your mom, your mom starts reading books. She figures out a lot. It sounds like so yeah. Tell me about the dairy. Like do you think that cleared up? You're breathing through your nose?
Arisha 11:41
No, the breathing through the dairy. I think what I started like, I'm 13 I think I started the dairy like 1112 but the gluten I like completely stopped up for.
Scott Benner 11:54
Okay, so when you stopped the gluten? Does that
Arisha 11:58
nose help? Yeah, I don't need to get surgery anymore. Okay,
Scott Benner 12:01
see, do you think it was just inflammation? Do you think your passageways were like inflamed and blocked?
Arisha 12:06
Yeah, something like that. But like, as soon as I stopped it, I don't know what it was. But like I like everything was just like magically better like a magic wand? For sure.
Scott Benner 12:17
Um, I'm interested for a second. Let's think about this. Gluten Free. My Google foo might fall apart here. Hold on a second. Now I did it. The relationship between the respiratory system and gluten? And you say you got better at sports? Was it because you were able to run more? Without getting out of breath?
Arisha 12:46
Yeah, something like that. Like as a four year old? I don't really remember. But
Scott Benner 12:50
yeah, you don't think you were like Pele out there?
Arisha 12:53
It was like it was a lot better because I remember like by Bob talking to like, my teachers and they were like, she's like so much better like because like I remember I would just like kind of just sit there what if I what I ate gluten but acid I was like we kind of like stopped it. It was a lot better also, but at the time we also stopped from dairy milk to like Albertville. So as a kid,
Scott Benner 13:16
this is what I'm looking at here. This woman is an RN say she was making a podcast years ago. I don't know if she does it anymore. But since I'm gonna quote from her blog, let me tell you it's called gluten free RN. And there's an episode here where her show notes are talking about body fluids separate and less tissues, leaky gluten alters. I'm gonna think I'm gonna have I'm gonna have to spell this one epi T H E ial tissue, including that of the lungs. There's some stuff here that's listed as anecdotal evidence. She said she has a fellow nurse that was had a lung removed as the child always needed an inhaler went gluten free, and the inflammation in the lungs cleared and didn't have asthma anymore. Didn't need the inhalers respiratory issues that may be corrected on a gluten free diet anemia. It's interesting that they're calling that a respiratory issues cystic fibrosis C, COPD, bleeding lungs, pulmonary edema, I mean these are just listen, it's a podcast. I don't know if I'm allowed to say something funny. It's a podcast. I don't know if you can trust it or not. I don't know what you can trust honestly. But it's interesting that they put the information out there so and it has it worked for you right?
Arisha 14:34
Yeah. Like it worked a lot. It's amazing.
Scott Benner 14:37
Is it hard not to eat gluten?
Arisha 14:41
No, I feel like after like a certain like if you go to a certain healthy lifestyle you kind of just like forget about all about that. You don't want to like go back. Do you
Scott Benner 14:51
find the gluten free foods are higher in carbs or no?
Arisha 14:56
Um, lunch like a usually at school. I district like I'll just eat a salad from home. So I don't really have to Bolus for that. That I like, for breakfast. I would just eat like, I don't really eat foods that are like replaced with like gluten free stuff. So
Scott Benner 15:12
you're not buying a lot of processed packaged foods. That's gluten. Okay, so tell me like, What did you have for dinner last night? Um, we went out this Okay, what did you eat?
Arisha 15:27
It's like an Indian food. It's called dosa.
Unknown Speaker 15:30
Not gonna, and it's
Arisha 15:32
it's like this rice kind of thing. Okay. It's like, it's like what you would consider, like a pancake but not but made out of rice. That's like crispy,
Scott Benner 15:47
crispy rice parents.
Arisha 15:48
But like, that's not what we usually eat. Right? It's like, oh,
Scott Benner 15:52
I picked the wrong day to ask about is that what you're saying? What did you have the night before for dinner?
Arisha 15:58
Um, soup and salad. What kind of soup? Mushroom.
Scott Benner 16:03
Okay, like a thin broth? clear broth? No, no. Oh, creamy,
Arisha 16:07
thick mushroom. Yeah, thick, creamy butter.
Scott Benner 16:09
Okay, all right. How about breakfast? What do you do for breakfast?
Arisha 16:13
Um, so I drink this power shake from Purium. And it like really helps. Like, I like their products a lot to like. And I just I drink their power shake. And sometimes an apple.
Scott Benner 16:29
Interesting. So do you consider your eating style like light? Like you don't eat a lot of bulk when you eat?
Arisha 16:36
Yeah, I pretty light I guess.
Scott Benner 16:39
Alright, so and this power shake every morning? Never. Not.
Arisha 16:43
Twice a day, sometimes. Usually twice a day, actually. Yeah. It like really helps though. Because it like if you drink what power shake? It's like six salads.
Scott Benner 16:52
Okay, as far as nutrients.
Arisha 16:55
Yeah. And everything's like organic and non GMO. And they have like these juices to that like a really? Like there's this juice called Aloe digest. It says it has 40 carbs. But I drink it with no Bolus egg. So
Scott Benner 17:08
interesting. I'm looking. I'm trying to look for the carbs on the power shake right now.
Arisha 17:13
I think that is more but like.
Scott Benner 17:18
Like, is that? Is that what's in your cup right now? Are you are you doing the power shake? No, no,
Arisha 17:23
it's just water. I drink power shake when I'm like, as soon as I wake up
Scott Benner 17:28
for hunger does it? Does it make you? Like, does that make the hungry feeling go away?
Arisha 17:34
I don't usually get hungry. So like, it's just like a schedule to how like if I drink like power shake, like my stomach's good. Because like, usually for school, like I would have to drink get my power shake at like seven. And then like, we would have lunch at like, I think 1220 So like, I don't eat anything from like, seven to 12
Scott Benner 17:57
Okay. I'm sorry, I'm just I'm reading about the power shake. It's I'm trying to figure out it's interesting. So, alright, so you don't so what what? What's the normal lunch then? I don't know why just stuttered. But what's the normal lunch then after the power shake?
Arisha 18:14
Um, it's sometimes like depends like, what's your like? It's huge. Um, I like soup a lot. Like probably like butter squash soup with like, like an orange and like maybe a salad.
Scott Benner 18:29
Have you pull that off at school?
Arisha 18:32
So you know, those containers that have like soup in them? Like, carry that? Like, I pack lunch? And then like, well, actually, my mom talks my lunch but like, and I pack it. It's like a buffet and my lunch box. It's a box of salad. Like,
Scott Benner 18:50
okay, so you'll take a soup and a salad for lunch? Yeah, have your shake. At breakfast. You have the shake again, when you get home from school sometimes.
Arisha 18:59
Um, if I do, it's probably when my brother gets home from daycare. So like, okay, or five? Because I have I have like a lot of after school activities.
Scott Benner 19:09
Oh, yeah. Like, what would you do? Slab so like, like, I don't really swim for fun or swim for competition. Swim for competition? Yeah. Do you beat people? Are you good? Kinda. What other activities do you do?
Arisha 19:27
Um, I played field hockey this season, but I bought that I did ice hockey last year. But yeah, I don't think I'm going to do field hockey again. And then I did taekwondo for the longest time until COVID. Like and I was actually really good. Like, I went to the World Championships and all that. But that that COVID happened. So I haven't done it since then.
Scott Benner 19:52
Because it got uncomfortable rolling around the floor with your face and other people's faces.
Arisha 19:56
Yeah, it was like at that dowel. If I go back like I don't want i'll probably forgot everything. So I don't want to like start at a white belt after like eight years of hard work.
Scott Benner 20:08
Did you stop playing field hockey because of this short stick? Did you hate this?
Arisha 20:13
Um, I only played for one season and it didn't seem very enjoyable.
Scott Benner 20:20
Every time I see field hockey, I think why don't they just make that stick longer? So everybody doesn't have to bend over like that. Right? Yeah,
Arisha 20:27
well, if you bend over then it's like harder for them to like, get your I don't know about great field hockey
Scott Benner 20:34
was your dad or your parents? First generation?
Arisha 20:38
Of what? Like, did
Scott Benner 20:39
they were they born in India? Oh, yeah. So did your dad like field hockey to remind him of cricket or no?
Arisha 20:47
My dad. Okay. So he plays he played a bunch of sports like as a kid, like, India, like they call like soccer football. So he didn't play like the traditional like American football, but like the soccer and like, like cricket. He did swim. He was really good at basketball. Yeah. Yeah, there's dad. He played field hockey, too. But
Scott Benner 21:11
oh, no kidding. There's a group of guys around here that in the certain times a year, there's this field where they play cricket. And I sit and watch them sometimes try. I try so hard to figure out what the hell is happening in cricket, but I can't figure it out. But But anyway, it's really interesting. I just I don't I don't know what they're doing. If I could get somebody to sit next to me and explain it to me while it's happening. I think then I would, I would probably get a little bit. Okay. So you're moving around a lot. And swimming is you know, for for, for people with diabetes, they can think Oh, swimming, your blood sugar must go up and down all the time. But how is your blood sugar doing swimming?
Arisha 21:47
Okay, so basically, for large, I don't really Bolus so it's like, it's right after school. So I just have one more class after lunch, and then I'm out. So my blood sugar's kinda like trending in the 90s. Before swim, which is, which isn't the best place to swim. So I'll eat like, a banana and apple, an apple sauce. And by the time and then I'll put my pub bot activity mode, because I have the Omnipod five. And then when I come back, it'll be like, 70 like, I've like confused. Why is it not going to like one flirty? Like, why is it 70? After I've done
Scott Benner 22:24
well, you must not how much do you know about your Omnipod? Five? Do you know how to tell me what your total daily insulin is?
Arisha 22:32
Up kinda, you just Oh yeah. So you go to this little biopic put up. And then you like put your password and all that. And then you click the three dots, the three lines, and then you go to history detail. Of that it will say total insulin, and it will tell you,
Scott Benner 22:50
yeah, so tell me like, What was yesterday's? The like, Just can you like go back? Like maybe two or three?
Arisha 22:57
I think it's like 3032. All right,
Scott Benner 23:01
in that range? Do you know what your when you first set up the Omnipod? Five? What was your Basal rate? Do you remember?
Arisha 23:09
Um, I think it was like, point 7.75. But it was like in a dash, it was actually point six, okay. But you have the pod five is like, I feel like if you don't learn how to use it, it's like really complicated. Because, like, no one, like we had to figure this out. But basically, like, if you Bolus, like if you're eating like an apple, and it has, like, I don't know, like, I don't know how many carbs apples have, but let's just say it as Ted, you like, I will have to put double in subtypes. Because like, it just works better. Because then cuz cuz it has the power to like, stop your insulin. So based on your iob it will like make your make the Basal like lower. Which is like kind of weird, because I don't think it should be doing that. Like, I think it should just let like, eat the food. Like let us eat the food. And if it goes like lower like, I don't know,
Scott Benner 24:09
do you remember on dash what your insulin to carb ratio was one unit covered how many carbs?
Arisha 24:15
Um, 20.
Scott Benner 24:17
Okay, well, we're gonna throw this out. So if you were one to 20 I'm gonna get a calculator. Don't make fun of me for wanting a calculator. It's the one to get it wrong while we're talking. Okay, so if you were one for 20 This makes sense if you were one for 20 and the apple is 10. So then you would basically need a half a unit for the apple but instead you get binstead You put in a full unit, which basically covers the apple and almost all of your Basal need for the next hour.
Arisha 24:53
Yeah, cuz like if so basically, if you have like point five, I would I just add I'd like basil for an hour.
Scott Benner 25:01
Right? So you're, what you're doing is you're covering the basil in case the system takes the basil away. Yeah. Okay. And then then if it takes it away, you that's how you keep your stability. Okay, and that works for you. Does it work for everything? Or is it only with like simple things? Because that's not exactly it
Arisha 25:21
works for everything. It works actually really well. Like in the night, it'll keep my blood sugar stable. Because like, also, I feel like if you have the Omnipod five, you need to like set like, I know some people who like set their high thing about 250, which in my opinion, is kind of like ridiculous. But like, my thing used to be at 200, I think three years ago, and now it's at 130 for like, high.
Scott Benner 25:48
So you're like, I'm sorry, your high alarm on your CGM is what they're right. Yeah. Yeah.
Arisha 25:55
Omnipod five understands.
Scott Benner 25:58
Oh, see you like that they're both kind of having similar targets in mind.
Arisha 26:02
Yeah, cuz, if it's like, because usually the Omnipod five, what it like Bolus is it. Like all the Bolus is what you're like, trending high. So like, I feel like 181 50 like gets kinda like late. Like, makes you go above 200. But if you put it like at 130, it can stop, but it won't go above like 160.
Scott Benner 26:25
Okay. And also, I think it's important to point out that you have a fairly simple eating style, meaning Yeah, meaning there's not a ton of different foods in your stomach that are being addressed by your system at the same time, so, but I like I like being like being able to tell your story so that people can hear that. Because just an apple, like you figure it out. Like this is how you Bolus for an apple. And I don't need it. You know, I don't need insulin for my salad. But you also might be eating. I mean, let's say this or it's just some people say they're eating salad, but by the time you look at it, there's like a pound of bacon on it. And I have a handful of cheese and like, you know, a creamy. Yeah, you're eating lettuce, right. Well, like sprout. Yeah, right. You're not putting a pork on it and cheese. Right, right. You're you're actually eating the greens. So you like listen to the journey?
Arisha 27:25
Oh, well, yes. Yeah.
Scott Benner 27:27
She eats like you a little bit. You actually you might you might eat cleaner than Jenny does. I'll make fun of her later. And does your whole family eat this way?
Arisha 27:40
Um, yeah. Well, my mom like I think she's like the healthiest out of all of us. By dad, I guess like, yes, like, same as me like, and my brother. Okay, I'm gonna just like be honest. He's the odd healthiest out of all of us
Scott Benner 27:56
a three year old. How is that possible? But does he ever see at the store buying food for himself? Or what's going on?
Arisha 28:03
No, he's like, like, we have to pack food for about daycare, because you have like, if you were like allergic to eggs, like you have to be like, kinda like sure about what they're eating. And since he like, follows the lifestyle that we follow, like, he obviously doesn't drink the power shake at all. But he'll drink like the little kid drinks. Like they have like the MVP chocolate. He'll drink all that. But he'll he'll he's the one who eats like the most packaged fruits. But like, they're like healthy packaged foods. Like, like, they have like, there's these simple, I forget what's called, but they're like organic and they're like, they have like really clean ingredients, I guess. Okay, so it's like,
Scott Benner 28:46
so his foods are just more they're easier because your mom's moving him around to different people and dropping in places and
Arisha 28:54
Yeah, cuz he's not going to eat a salad like he'll, he'll probably eat like, I think it's like quinoa. Okay, and like rice most of the time. Okay. But like he, but he is like healthy in some ways, because like he really likes seaweed.
Scott Benner 29:09
So there's no one. There's no one in your house. Like when you guys sit down to watch television together or you're just paying you're hanging out. No one's eating Doritos. Is that what you're saying?
Arisha 29:18
No, no, like it's we don't get chips.
Scott Benner 29:21
Okay. Have you ever had chips?
Arisha 29:25
Um, yeah, I think when I was younger, yes, for sure. Like below for and then before we started like to focus on like gut health. I think like before this like a like 10 I think occasionally I would get it but like, after a certain point, you're like, it's kind of not worth it because I don't want my blood sugar going to 300 Okay, like you kind of have to like kind of like, now I don't crave this stuff. But I remember a time where I did believe you have to like kind of control yourself because you don't want your blood sugar going to like 280 it's kind of not worth it. You
Scott Benner 30:01
Did you figure this out on your own? Or do you? No, no. Your mom moved you in this direction. Yeah, was it graceful? Do you remember time and it was zero. Or she did you ever? Did you ever fight against how she was talking to you about food?
Arisha 30:20
The only time like I didn't like is like, I think I was like, five and she forced me to drink almond milk. But I think that was the only time but like, I don't think I didn't It's because I didn't drink like regular milk either.
Scott Benner 30:37
Or you didn't like milk in general?
Arisha 30:39
I didn't like it in general. So like, yeah, like I don't think anybody in our family really likes regular.
Scott Benner 30:46
I'm gonna bleep this out. But your mom's GMO Capo pen has no visible needle, and is a pre mixed auto injector of glucagon for treatment of very low blood sugar in adults and kids with diabetes ages two and above. Find out more go to G vo glucagon.com forward slash juicebox G voc shouldn't be used in patients with insulinoma or pheochromocytoma. Visit GFO glucagon.com/brisk. Just last week, Arden was about to run out of her Dexcom supplies. Now. I was like Oh no, what will I do? But just as that was happening, I got an email from us Med and says do you want to reorder your extra supplies? And I was like yes. Click Add then they came to the house? Huh? What do you think of that? Us med.com forward slash juice box or call 888-721-1514 Same goes for maybe like three weeks ago? The same thought I started having except I was thinking about Omni pod. I was like Where are Ardens Omni pods that am I running out of those? What do we need? Email came? Would you like to do your order again? I would collect there they were super easy. Guess what else us med has libre three, they're going to have Dexcom g7 Very soon. And us met also dispenses Novolog insulin as part and human log insulin lispro through their pharmacy benefits. They've served over 1 million diabetes customers since 1996. And you can get everything from insulin pumps, and diabetes testing supplies to all those latest and greatest CGM that I just spoke about. US med accepts Medicare nationwide, it over 800 private insurers, they have an A plus rating with the Better Business Bureau and you you want to get your stuff from them. Because it's easy, and they're good. So let's call that number 888-721-1514. Go right on the internet, the web, the Urals, go, U S med.com. Forward slash juicebox. You know, the Urals the URLs, that's the URL us med.com forward slash juicebox. You can do it, it's not hard. And then everything after that, if you get it set up, you know, nice and easy, like butter. There are links to us med G vo Capo pen and all the sponsors in the show notes of the podcast player you're listening now. Or at juicebox podcast.com. I'm telling you that because when you click on my links, you're supporting the show. You're letting the advertisers know, I heard about us med from Scott on the Juicebox Podcast. And then next year, us men will be like, yes, we'll buy more ads from Scott at the Juicebox Podcast. And then I get to keep making the podcast and you get to keep listening to it for free. Plus, my bills get paid. We all win. All right, well, this part's over. I'm gonna get back to a Russia now. But when you decide to get the hypo pan or something like that, click on my links, please. Please, please, please. I know you're thinking right now. I like you, Scott. But I went to my doctor's office and asked for an omni pod. Yeah, I didn't get credit for that. Okay. I'm sorry. Maybe I can get a part time job at the Piggly Wiggly or something. Make this podcast in the middle of the night when I was supposed to be sleeping. You just you'll be comfortable. Don't worry about me
Yeah, okay. All right. So I because I kind of know her from online a little bit. You do? I mean, she's in my group.
Arisha 34:35
Oh, yes. Oh, yeah. Like from
Scott Benner 34:38
that and? And the the podcast over? Actually, I think I know how this happened. There's an app called Ghana. I think that's what it's called. And it started carrying. It started carrying podcasts like a couple of years ago. It's I think it's like the it's a very popular audio app in India. And then once that happened, more Indian people started listening to the podcast. Um, but that's how
Arisha 35:14
my mom, she got introduced to this podcast by like one of her friends and like through the podcast app, so I don't think it's related to God. I've never heard of that. Yeah,
Scott Benner 35:24
no, probably not that one. I'm saying that, generally speaking. So I mean, first, the first influx of people, the first influx of Indian people came around, almost around type two, a little bit, because type two is kind of prevalent in Indians. Yeah, you're right. So that was the first time. And then I think people found the show, and then they just started talking about it with people. And you'd be it's interesting how information spreads through culture, as well. Like, if you've listened to the podcast, and like, you'll know that a lot of Mormon people listen to the podcast. And that's another cultural thing that somebody, you know, found it enjoyed it. And when they turn to tell somebody else about it, it's another person in their kind of cultural circle, and then it sort of spreads that way. It's interesting, actually. But, but Okay, so now I want to talk about what do you understand about your, your guts health? Is it all from your mom? Do you do reading as well? Is it just anecdotal? Like you've tried things and you notice what happens? I want to hear about all that.
Arisha 36:32
Okay, so basically, when we started in this, I think, like my mom's cousin, or like, one of her friends, she like, was like, You should go to a functional medicine doctor. So we went there, because I think, at the time, my blood sugars are kind of imbalanced, like I was really tired, and all that. So we went there. And he started giving us like these medications, like the like, supplements. And like, he explained to us that I had like something that was called a leaky gut. Which is basically when I not explained this, but it's basically when like, foods go through your like that, like the cell wall is like broken? Yes. And basically, so he made us do some tests. And one of the tests was like, testing my energy level. Because and when it came back, the functional doctor was actually really shocked. Because like, the my energy level at the time was equivalent to a 60 year old man's energy level was really bad. And so we kept doing it, I think, for six months, but I ended up getting like, really expensive. Because like, I think one bottle like this big, like the size of like, like my hand would be like was like I think over $200
Scott Benner 37:56
Did you start having a feeling that this man was making money off of you? Um,
Arisha 38:01
no, because it was working. It was working. It was working. But he wouldn't. He wasn't like teaching us stuff that like we've learned now. So then later, like my mom, she's became like, active on Instagram. And she found some people, like under period, and she learned about like, being organic got held. And so then we started using like, period stuff and all of this. Yeah. And then we suddenly and then like, I don't know, like, it like worked really well. Like I had greats like my, when I slept. It was like really good. I didn't wake up in the night. And my energy level like we didn't get the test again, because we like, you know,
Scott Benner 38:43
why would you? Why would you wake up at night? What was waking you up? Alarms? Oh, your blood sugar was bouncing around. So you were waking for that? Yeah. Okay. I didn't know if it was like distress like in your stomach. Or if you had to use the bathroom overnight or stuff like that.
Arisha 38:59
Like sometimes like but like not, not like it's usually alarms.
Scott Benner 39:03
Okay, so. Alright, so yeah. So I I've heard. So first of all, leaky gut is a term that I think you do have to go to a more integrative doctor to hear them talk about it. Like I don't think your regular like GP is going to be like you might have leaky gut. I don't think they think that what I've heard Jenny say she doesn't like I think it was Jenny. She doesn't like the term, but she understands where it comes from. So I'm going to read from the Cleveland Clinic for a second so people can keep up. Leaky Gut Syndrome is the theory that intestinal is a theory that intestinal permeability is not only a symptom of gastrointestinal disease, but an underlying cause that develops independently. If you're if your intestinal barrier is impaired, it may be letting toxins into your bloodstream. So I think you said it better than that. Like there's There's like pass throughs in the cells. And if they get too large then things that don't belong outside of your gut end up getting into your body, causing, you know, people think, stiffness, you know, joint pain, muscle weakness, tiredness in general, this sort of thing. And have you heard the episode where we talked about Arden going to the gastroenterologist, they looked down her throat and said her food wasn't digesting. Well, have you heard them? So? So Arden had stomach pain for years, and she wasn't eliminating well, you're 13 I'm trying to be so like, you're like, why is it not cursing and saying stupid stuff? It's because you're 13 and I'm looking at you. So So anyway, she eat their food wouldn't digest well. So then she had pain up here, like, you know, in her sternum. Right? Because everything was kind of, like full. And then she wasn't passing, you know, still properly. And, you know, we tried all sorts of anything you can think of like eat gluten free eat like this, the only that like, you know, everything, nothing fixed it. And then one day, we took her to a doctor who just looked down her stomach and like his, it was he was a regular just, you know, a regular old white coat doctor, and he's like, he's like, you know, she has gastroparesis and like, she's gonna need drugs for this and this and this. And I was like, none of this makes sense. Like Arden's blood sugars are not out of whack. Like her blood sugar's don't act like she has gastroparesis, like, none of this makes sense. And then we kind of realized that when you have diabetes, you think of gastroparesis as a slowing of digestion that happens from poor blood sugar control, and, but the rest of the world who doesn't have diabetes just thinks of gastroparesis is a word, that means you digest foods slowly. And so we started thinking like, okay, like, we'll help digest our food. So we gave her a supplement, which is just a digestive enzyme, an enzyme because you guys like your pancreas is funky, you know, and, and so as Ardennes, and you know that your pancreas has two jobs, you know what they are?
Arisha 42:13
Isn't that like, like to process?
Scott Benner 42:17
It's make it makes digestive enzymes, and it makes sense one. So sometimes people get type one diabetes, and their digestion changes. So we threw some digestive enzymes in Arden while she was eating right. And now, she's like, Okay, this is it's better. My stomach isn't hurting after I eat. But she still wasn't like, it wasn't coming out the other side, or she, you know, I'm saying, and so like, Okay, so we're like, Well, what the heck. So then we gave her magnesium oxide, which is just a and that made her start going to the bathroom. So now we had the food digesting, we had it coming out the other side. Hold on second. I had COVID A couple of months ago. This part is not going away. Sorry. So now we've got it. We've, I was gonna say flowing. But I think that word is just improper. And this things are working the way you expect. But now how do we get to the part where because my expectation was, and this was just guessing on my part, right? I thought if all this food was sitting in her stomach for so long, her stomach can't be a hospitable place right now. Right? Like, like the bacteria in her stomach can't be balanced correctly. Like, this isn't how your stuffs supposed to work. Because in the past, before the digestive enzymes, and before the magnesium oxide, we would try giving Arden like probiotics and things like that to help like balance our stomach. But the truth is that stuff I don't think had any chance because it was not a good situation in there. So once we got everything moving through, right, then we hit her with the probiotics. Amazing changed her life. Like really seriously. We're still clearing her acne up. But it's so much better than it was. And your stomach doesn't hurt any more like she and I went out to dinner last night. This will probably freak you out. We had chicken and waffles. So fried chicken and waffles at the same time. I well you eat chicken right?
Arisha 44:28
Yeah, chicken. Like just like a fried chicken.
Scott Benner 44:32
One time have chicken and waffles just once. And don't go back because I like the way you eat. I don't want to see I don't want you calling me five years from now being like, Well Scott, I've gained 50 pounds and my blood sugar's all over the place but I do love chicken and waffles. You're right. But anyway, like, like, you know, everything's doing better for her now. And then she comes home from school. You're not going to when you might know like you know how you have a rhythm to your life. And you're while you're in school And then When summer comes, everything gets messed up for a while. Yeah, right. So she came home, she was a college, she had a nice rhythm go and she's taken her of acid haul, which helps her hormonal imbalance. She's, you know, taken her, her, her digestive enzymes and she's eating, she's taking your supplements and I prefer she goes to bed, everything's going great. And then you come home from school and like, Oh, I just want to sleep. And then you get off schedule, and then you're not there. And then you know, the next thing, you know, like five or six days later, I'm like you all right? And she's like, Oh, my stomach hurts. I'm like, are you doing all the things she's supposed to be doing? And she's like now, and then now I've gotten her back to doing it again. And it's just, it's interesting, like, so I think for Artem, I don't think her body makes digestive enzymes properly. And I think that's the basis of her entire problem for years. Now, she still has, you know, there's still times where stuff gets funky on her and stuff like that. And I mean, you guys have autoimmune diseases. So it's tough, right? But this is a big deal. So I want you to tell me, go over it again, you see that you see the integrative? And what does he is he or she I'm sorry? What that integrative Doctor UFO, oh, he, what's the first thing he does work?
Arisha 46:15
Well, he, he wants to like talk about our past, I guess, in our history. And he gives us like these little papers, and he wants us to like, take notes. And so he first like, asked me, and he because if you're like a functional doctor, you believe all problems start from the stomach. Okay. So he starts talking, and then he asked, like any trauma or anything, I haven't, I've never really had any trauma, I guess. But as a four year old, I always got sick. Like, when I was like two and a four, like, I would always get sick. And I would always have to get like, like Tylenol or something to bring my fever down. And according to him, because I had so he wants to figure out how I got type one diabetes in the first place. So according to him all the like antibiotics that I took caused by type one diabetes, because they like, wall like, I don't know, something like that, like killing the bacteria, the good bacteria in my stomach,
Scott Benner 47:23
you think he thinks the lack of bacteria in your stomach? Oh, so now listen, what I know, from doctors that have been on here is that people are born or develop markers for type one diabetes, right? And it seems like it runs and family lines a little bit. You know, and stuff like that. Could you know could getting rid of all the bacteria in your stomach? I mean, lead to something like that. I can't say for sure. But I also don't think it's a crazy thought, You know what I mean? Like you're, there's a balance in your body. If you knock that balance off, other things can get out of balance, too. I mean, we just talked about it with Arden. Like, you know, it's uh, you know, her, her pancreas stops working right. And as we look back, and it is important to look back, I think Arden stomach hurt for a long time. And she was when she was younger and we didn't really know what to do about it, you know? So, okay, so he so I mean, obviously this is also I don't want to be cynical, but it is also it is this man's business model to tell you your stomach is unbalanced and to sell you things Yeah, it gets you going okay, but But it ends up working for you. So who cares, right? Yeah, right. So what do you get? Do you get probiotics are they in pill pill form or that kind of stuff?
Arisha 48:45
He doesn't give us probiotics because he says in order to have probiotics like the purpose of probiotics is to like fake your stomach is to turn like the bad bacteria into like good bacteria but apparently according to him I have no bacteria so he says I cannot have that like probiotics yet. So he gives me what does he give me so he basically gives me like this gut thing like a gut pill.
Unknown Speaker 49:13
Okay
Arisha 49:15
something that's called a dreaded all of these are all pills and they're like they don't have natural stuff so we don't really like question herb I guess
Scott Benner 49:25
whatever you weren't doing well. You're doing better now. And you know how to spell that
Arisha 49:31
a dreadful Yeah. A d R E Ed. And then dash that all
Scott Benner 49:41
I got it sorry. Looks like Arden except the letters are switched around. Okay, so he How long do you take this for? Like six months? No kidding. And then did you start to feel better?
Arisha 50:05
Oh, yeah, like I think we felt like really good for a while, but that like we kind of got used to it but like, I feel like we could have done more things. Because I feel like functional better functional medicine doctors are supposed to like teach you about like healing the gut not just by like taking pills but also by like changing your food. Because the problem like oh is usually starts with food. So he never like taught us I guess anything about like, eating organic and like all the food oils, because like, there was a time when we used to like, like, put canola oil into our food. And that was like, like a really bad time. Because like, canola oil is actually really bad for your gut. And you're supposed to like be having avocado oil.
Scott Benner 50:49
So two things I agree with you I want to go back to that adrenalin law provides targeted amounts of vitamin AC Panfilo, Nick acid and other B vitamins that are critical to adrenal gland function. The powerful formula helps support the body's resilience or resistance to fatigue and aids in maintaining balance. Cortisol doesn't say how it does that. Or how they're saying it does that, but I really agree with you about the oils, but I stopped eating. So the only oil I use now is a cold pressed olive oil. Like I won't even need like hot like do you do you think of it that way too?
Arisha 51:30
Well, we'd use avocado oil ever for like baking good stuff. We use coconut oil like but it's like organics
Scott Benner 51:37
Yeah. I don't know what I don't know where it was. I just saw this. I saw this doctor, this woman on TV One time. And she's like talking about it. She's like, it's the hatefully I was like, What is this lady saying? So I listened for a second and she said, canola, corn cottonseed. Soy sunflower safflower flower, grape seed. Rice. Bran. I think I got all those right. She's like, don't eat those. Like, just don't Yeah, they're really bad for Yeah. And so I'm like, All right, because I grew up thinking. I grew up thinking, I guess it's marketing. Right? I grew up thinking canola oil was the better oil. Right? And like, that was just, I don't know if that's what I thought. I don't know who told me that or why I you know, anyway. But they say like she says she says specifically, she actually has a website is Dr. kake.com. That seed oil weakens your immune system?
Arisha 52:41
Well, I don't think it's like the seeds in general. I just think it's based on how they've been like process.
Scott Benner 52:47
Yeah, right. And that's why I'm like, like, when you heat something up, it changes it. So these, this is not an apples to apples comparison, although it might be and I just might not be smart enough. But that's why, like, people will tell you like Don't, don't microwave plastic. Right? Because it does it because it changes it. And who knows. I mean, I'm sure there's somebody who could explain it. I'm not the right one. But don't microwave plastic. Don't put plastic in the microwave, even when like I make hot tea. Like I make iced tea for myself. And so I boil water and I put the water in with the tea bags and I make tea, but I will only use like a glass container to dump the hot water until because I don't know why but I'm just like, I look at myself and I go something obviously went wrong. You know what I'm saying? Or should you say I'm saying you know, you're like this guy should eat a salad so and so. Like I know something went wrong along the way and I figure if there's just some simple things to cut out like why not you know? Yeah, and so did that though.
Arisha 53:53
Yeah, because like if you like we do buy like some packaged foods, I guess. Like we buy the simple meals like like they have like garlic crackers and stuff. And like, if you look at like their ingredients compared to like Lay's like chips, you're gonna find like potatoes and like canola oil. And like Lay's, like you already know canola oil is bad for you, but then you're probably gonna find something like a sorbic acid or mallows sorbic acid and those two are like really bad for your gut as well. Because like it's it's not just like oils like oils is probably like one of the most important things but then I would go on to like acids and sugars, because that like has really helped like manage my type one diabetes, as well.
Scott Benner 54:35
You don't have much sugar.
Arisha 54:38
Well, if I do have sugar I put I only use coconut sugar.
Scott Benner 54:42
I didn't even know that was a thing.
Arisha 54:46
Yeah, I use coconut a lot like I use coconut oil as like moisturizer for my face to okay, like really helps
Scott Benner 54:54
coconut palm sugar. That's it. Yeah. And you so you bake with it.
Arisha 55:01
Um, usually, like if I make like cookies or
Scott Benner 55:04
something, but like, what kind of cookies do you make? Just
Arisha 55:08
like the regular like chocolate chip, but like it has like, instead of like wheat flour it will have like tapioca or root. Okay. And then I'll put like the sugar. Like most of the things I bake are based on nuts. So, gotcha. Not sure like, oh, so that I'll put like, some nut butter eggs. So like, I'll with butter. But like the thing with Alba butter is that you can't really grow Allods if to like make them organic, because it's like really hard. So they're really hard to find, like organic elements, like much harder to find like or like Alba butter. That's organic, too. So because if you think about it, if you're not eating like organic food, you're technically like eating all those harmful pesticides. Because there's also this pesticide called glyphosate. And it like goes like they spray it on everything the United States like it's banned everywhere else except the United States of Canada.
Scott Benner 56:05
Canada,
Arisha 56:06
that's Sorry. Yeah.
Scott Benner 56:09
Like those Canadians. Okay. Glyphosate is a broad spectrum, systematic herbicide and crop. Not sure that we're just, it is, well, there's a lot of words here, I don't know. It is an Oregon, oh, phosphorus compound, specifically phosphonate, which acts by inhibiting the plant enzyme, blah, blah, blah. It's used to kill weeds, especially annual broadleaf weeds and grasses that compete with crops. Okay. So I was listening to this guy recently talked about, like, he's, he's got a farm somewhere, and the that he doesn't want to spray for the weeds. So well. So he's going to the trouble I think of buying, like putting animals or bugs or something on the property that will eat the weeds instead, so that he doesn't have to spray which stuff like this.
Arisha 57:04
Because it's like really bad for you. Because I think like, I've read this book, and like, I've seen, like, their studies showed that like, people who have cancer, like it comes from this.
Scott Benner 57:15
It's interesting, though, the EPA says there is no risk or concern to human health from place for glyphosate. So, but who cares? Like if it's, like, say, but you're kind of young for this conversation, but like, there's a lot of people in the world, okay, and we got to make food for them. And I know that that's difficult, right? So we've, you know, we found ways to do things. And there's probably a side to this argument really, like, Look, if people make it to 75 years old, and they've lived a reasonably healthy life, but their stomachs hurt a little bit. That's not so bad. Because if we didn't farm like this, nobody would have food, and you'd all be killing each other for a french fry. And so like, you know, like, you know, maybe there's Yeah, right, common sense in there somewhere, but it doesn't make what you're saying. Not true. And so for some people, if they can, understand or afford, are able to make better decisions like this, you know, it's a weird thing to think, right? That, that you're trying to eat in a way that doesn't kill the little bugs in your stomach, which really help keep your body balanced. So how much of that do you think about? Do you? Like I was just having this conversation the other day? I don't know what it is. We talked about around here like when this microphones not on, but I said to Arden and Cole. I was like I heard somebody talking the other day about it was Neil deGrasse Tyson. You know who that is? No, no, he's like a physicist. Hold on a second. You don't know who Neil deGrasse Tyson is? I bet you do. I bet if you Googled him right now looked at this picture. You'd say I do know who that is. Neil and EI l de gras is the E G R A. SSC
Arisha 59:00
Oh, I know that guy told me that guy.
Scott Benner 59:04
So that guy said something. Like if you take a very tiny sliver of your I forget what he said like your intestine or something like that, that they're like more like living things in that little like section. Then I forget how he put it all the people who have ever lived on the earth combined. So your body is basically like your earth for other things. Like there's a whole ecosystem going on inside of you things that are alive inside of you that are not you. Right, like, you know, generally mean like it's a weird thing. Like the the, you know, the the probiotics that you know that you're trying to grow the right bacteria in your stomach. That bacteria, isn't you? It's another thing and yet you can't digest food without them in there. Yeah, it's so funky right? Isn't it weird?
Arisha 59:59
I know But like make sense in a weird way.
Scott Benner 1:00:02
Have you ever looked at like that there's, there's things that live on your skin that are eating your dead skin.
Arisha 1:00:09
No, but I've seen that for your scalp like not your Yeah, like your hair scalp is like they're like really tidy.
Scott Benner 1:00:16
Oh, hold on a second. Don't Google this, it'll freak you out. Okay. Don't Google bugs that live on your skin and then go to the images that Orisha doing now
they're like skin mites. They're all They're everywhere. They're on your face. They're on your fingers. Are you looking at the pictures? Yeah. Are you freaked out now?
Arisha 1:00:47
I mean, at least they help you.
Scott Benner 1:00:48
Yeah, I know. Look at though, do you see the one with the face that looks like it's in a monster movie? Yeah.
Arisha 1:00:56
Actually looks kind of cute, though. See,
Scott Benner 1:00:58
it's, it is helping you. But But there's another example. Like, if those things somehow didn't exist on you, then, you know, like, other stuff would happen. So yeah. So basically, you don't want to be the one spraying Glice of fate, or whatever it is on the little things that are like, it's alright, let's make a big idea. You eating so poorly, that it's killing the bacteria in your gut is it's like walking into a forest and spraying napalm. You're, you're just you're burning the place where it lives. And it and then when you're leftover, you don't have a forest anymore. So you want your stomach to be what your stomach supposed to be. And listen, you eat? You You have obviously. I mean, I'm amazed that how you eat at your age, like I think it's it's amazing. And it's cool. But I don't know that everybody could be like, Yo, I'm gonna have a shake for breakfast and a salad and some butternut squash soup for lunch. That's how I roll. Like, like, that's pretty kind of special that you can do that. I'm jealous of you as well, I'm saying. But still, there are simple things you could do everybody? Yeah, like avoiding those oils, right?
Arisha 1:02:13
Because I know, a family who, like they have two kids, like one had asthma and the other one has type one diabetes, but the like, they switched oil and the kid who had asthma, like doesn't have any more symptoms. And like, according to doctors, he's like, cured from that. Like,
Scott Benner 1:02:33
I really think the oil thing. I mean, you don't have to do much. Any of you can Google, it just isn't me. Right and pay attention listen to people while they're talking and try to like discern for yourself, right? Like, canola oil was developed. Okay. I'm reading sorry. I mean, it's a it's a, it's a man made thing. Right? Like, like, just look a little bit into it. I don't want to be the one to like, pick through it and say, right, but like, you know, there are you we are eating things. I'm not speaking about canola in general, but we are eating things that were developed by scientists to be like machine lubricant. And then, and then they were like, Hey, you could eat this? I don't know. It seems like a bad idea to me. And maybe look maybe, you know, in a million years of evolution, maybe our bodies will learn how to deal with canola oil and things like that. But for the moment right now. And people can say, well, I eat it. There's nothing wrong with me, but I don't know I'm looking at you. You're healthy looking person. Your your skin looks healthy. Your You look like you're the proper weight for your frame. Like didn't you mean like you have good energy, and you're smart. And you're thinking on? I mean, you and I are talking about some heavy things, and you're 13 and you're, you're retaining information and pulling from things you've learned before. And you know, I mean, I know a 13 year old kid, when you say their name, they're like what? It is. So I don't know, like, it's working for you. You must be excited that you figured it out this early in your life too. Because you could have gone yeah, could have gone a long time and not known right. Is it hard to go out with your friends?
Arisha 1:04:34
Well, not really. Because like, I don't know if you know that like in eighth grade, you have to go to Washington DC. Oh, do you? Yeah, so we went to Washington DC. And like, it was like, it was kind of hard to like adjust based off like the food like it's not that I wanted their food. It was just that they didn't really have as many options like at some restaurants they had like really good options. So Like it was, like helpful, but like sub restaurants, they didn't have so many good options. So I would just like eat like a fruit or something because like, I remember I ate this rice thing that they made and it was like gluten free, like dairy free, but like it made my blood sugar go to 320. So I didn't really I didn't really trust Washington, DC dude again. So,
Scott Benner 1:05:21
yeah, Washington. What are you doing? Now? Basically? Well, you went to a place where they drag a bunch of kids. So there's Give me what chicken fingers french fries, pizza, like stuff like that. Right?
Arisha 1:05:31
They give you like a tiny menu. And it has like, a couple things. But like, I'm still like, really grateful for the experience. Yeah,
Scott Benner 1:05:38
no, I understand. But, but it's, I mean, when the world's working the way it's working. It's hard to go out into it without being prepared. Yeah, yeah. I did an episode with Jenny recently about how she eats. And they said like, well, what if you go on like a long car ride? What do you do? And she's like, I packed food debris out with me. And I was like, you don't stop at a convenience store ever and get like a pack of Swedish Fish? And she's like, No. That's how I go on ACARA. But it, so it takes some pre planning, but not a ton of them. But sure it becomes part of your life at some point. All right, and it's not a big deal. Well, it's, it's been interesting. Okay. I don't even know how long we've been talking. Sorry. I was like an hour. Geez, what else? So what else did you want to talk about? Because you got out a lot about how you eat and how you Bolus and stuff like that. So what else?
Arisha 1:06:29
Um, I don't really know. I'm
Scott Benner 1:06:36
like, what would you want people to know about your diabetes? Um, you turned into a 13 year old for the first time while we were talking just now you're looking at me like, I don't know. Your cheeks are getting red. You're like, why are you put me on the spot like this man. It turned into like a regular old boring interview. I'm like, so tell me about yourself. But But what did you um, but seriously, like you said, you want to tell people about how you do things. Do you feel like you've done that?
Arisha 1:07:04
Um, yeah, like pretty much like for Dexcom. Like, for the g7. I'm, like, pretty excited about that. But like, the thing with Dexcom is that I feel like it like, if it doesn't have internet, like it doesn't share. But if you have your own, like, 5g or whatever, like it doesn't work either. Which was like kind of challenging. Some at some
Scott Benner 1:07:26
point. You're having trouble with sharing your stuff.
Arisha 1:07:30
Like it only works when I have Wi Fi but I feel like it should work when I have like a 5g you'd like or
Scott Benner 1:07:35
like yeah, one of those like, hippie don't eat oil phones over there. Is it like a regular phone? Oh, no. It's like a phone like, alright, yeah, no, I thought looks like you through the ground a couple of times. Maybe? It's a bus. Oh,
Arisha 1:07:48
yeah. I had to get a case because I was scared. I was gonna like, like, break
Scott Benner 1:07:53
it. So is the back of your phone broken? or No? Is it just the case?
Arisha 1:07:57
Oh, it's just it's just like the cover like it cracked once on the corner. And they got me scared. So I just got a better case.
Scott Benner 1:08:04
In the first couple of weeks that Arden was a college. She'll kill me for telling you this. I don't even care. She fell out of a bus. How does that happen? Her pant leg got under her her heel. And she just like while she was going down this this is actually it's not funny, because it's not like a it's a it's like a city bus like that the school uses to move kids around with and she just like, fell out of the bus. And her phone went like flying. And the whole back glass. Like broke. It was shattered. But none of the pieces fell out. So she I mean, she was she wasn't gonna know for like eight weeks, the phone was working fine. Also, she's looping. So, you know, at that point, she was using free APs. And now she's using loop Dev. But you know, I'm like, well, that phone can't stop working. You know what I mean? So I had her go home to back to her dorm room. And she just took tape and lit and put tape across the back of the phone to hold all the glass in place. Anyway, Arden fell out of a bus. I'm gonna get her on the podcast to talk about at some point. She's very embarrassed by it. I've teased her about it in front of people once or twice and she looks at me like do not tell people and I'm like, I'm gonna tell people you fell out of a bus. Anyway, she had like a run of very weird, like, like small accidents at school. She ran into a door jamb. Like, like, you know this, you know, like, you think of your dog. Yeah. And then there's the part around it. She just I don't know what happened. Like she expected the door to pull or push. I forget what it was like, whichever she thought her and she just like in her head and like she crushed she just crushed into it. And she she facetimes me she's like, de she's like I just walked into a metal door. Anyway, I know you're 13 and I know it a little sounds like you went to a guy who was trying to sell you some stuff at some point. But I, but I super believe in what you know about your stomach about your gut, like I am all in on this being a very reasonable thing for people to consider into. And it is so super simple to cut out those oils that I mentioned earlier. Use. I mean, I just I just go to Costco. Honestly, I go to go to Costco, and I buy their cold pressed olive oil. And it's good. It doesn't have any weird flavors. It burns clean. Like you know, like even if you put it in a pan you leave the pan on to heart like you don't notice any like weirdness going on you so I use that. We do use butter in the house when we're cooking. And, but that's it. There is a tiny bit of canola oil on the house for popping popcorn. Because you can't pop popcorn in. In the other oil. It tastes funky. With the microwave. Well, you could but we were popping it on the stove. Like making it ourselves. Oh, you don't I mean, she
Arisha 1:11:14
put like stuff on it. And that Oh, like help.
Scott Benner 1:11:17
Well, I'm trying I've tried. Trust me. I tried a number of different oils that are better. I just can't make it work so far coil. The only thing I can make it work with. You
Arisha 1:11:27
could try putting like, like subtypes I put like that a bit audit or like
Scott Benner 1:11:35
you but what do I use for an oil?
Arisha 1:11:38
Well, you're gonna just use like, Just you try like, like a good oil and then put like stuff on it like the cocoa powder
Scott Benner 1:11:46
to cover up the coconut oil based on the popcorn.
Arisha 1:11:48
Yeah, like that. Like could this I feel like it was if it would be coca that it would like give you like coconut flavors?
Scott Benner 1:11:55
Well, I'll tell you, um, I just Googled it. I would have never thought of coconut oil until you said it plays popcorn and oil three quart pot. Okay, so you can popcorn in coconut oil. I'm gonna try it. Yeah, I'm going to try.
Arisha 1:12:10
Yeah, we use that. Or coconut oil for that because it tastes weird it avocado oil.
Scott Benner 1:12:14
Yeah. Okay. All right. Well, thank you. I'm gonna try that. I just I don't know, like, do you so as a regular course now? Do you take probiotics now that you're healed? And everything's Oh, you don't really need them anymore? Right? Yeah. And your digestion works well and everything. Nice. Wow. Do you ever think you ever thank your mom?
Arisha 1:12:36
Yeah, I really grateful for like every word. Because like I have like, like, for the DC trip to when we went by Dexcom wasn't shared correctly. So by nurse she had day like every two hours, she had to come by robe. And she'd set alarms. So like, like, grateful for that to like, like all the people because I know like a lot of people don't have all of that.
Scott Benner 1:13:00
There was art and went on as a senior in high school. They went on a trip to Disney, which sounds like so much fun. Martin hated it. But she talked about on the podcast. She's a little like me. She's like, it's hot. But so. But there was a nurse that the school hired to be there. And she was right across the hall. And they were there for like five days, I think. And she followed our donor CGM and had conversations with us ahead of the trip. And there was one night that Arden got lower overnight. And my phone rang. And it was Arden. And she's like, Hey, the nurses here, it's like three in the morning. And she wants me to drink a juice. But I already took care of this and I don't want to drink a juice. I don't need it. And she's like, Well, you tell her and I'm like, okay, so but the nurse was great. Like she was a lady who didn't know a lot about it. And she she took the time to learn. And she took it seriously and I was really grateful as well. I thought it was very nice of her. So my my last question for you. scale of one to 10 one is super easy. 10 is really difficult. How hard is it to have diabetes for you? Three how much of that do you think is because of your diet?
Arisha 1:14:20
Like non you know, I think the diet like helped it from like a seven to a three in my opinion. Yeah, because the only thing that annoys me is like going low in class or like they are fight pub like has an error and class like all of that.
Scott Benner 1:14:36
But you don't use as much insulin because of the way you eat which probably limits yes and lows a little more right? Yeah, yeah. Okay, so you weren't having a lot of like how did you eat before all this? Were you like were you eating? Subway? Were you signs and every like Subway and french fries and chocolate? Oh, no.
Arisha 1:14:56
I think I've just felt like I think my my family has just been like pretty Be healthy from like, a young age. Like I think we did eat like sub chips at all of that. And like, I know we had like dairy ice cream and all that, but like we had traditional Indian food, so it was more like like, we had like, I don't know, roti is it's kind of like a bread. Like at a circle. I guess
we have a gluten free woods for that. Well add like, maybe like lentils a lot. Yeah.
Scott Benner 1:15:36
I think you've I mean, it sounds like you have it going really well for yourself. I'm broke. I'm happy for you very happy for you may have diabetes for a long time already. What's your Excellency? Do you know?
Arisha 1:15:49
I'm six? Six.
Scott Benner 1:15:50
Very nice. Is that what your goal is? Or does? It's about days? What's your goal?
Arisha 1:15:55
I want it to go to like 5.4 Yeah, like,
Scott Benner 1:15:59
the five why? Why is it not doing that?
Arisha 1:16:02
Um, because if you have an average of 120 So if it's like 120 the entire day, your agency is actually like 6.1. So like, even if you have like, some highs, like if you go to like 160 and you don't drop low, you're a onesies
Scott Benner 1:16:18
gonna be like sick. Yeah, right, it throws off the average a little bit. But like,
Arisha 1:16:22
it's kinda good.
Scott Benner 1:16:24
How's your stability, though? You're not up and down all the time, right?
Arisha 1:16:28
I'm not really like, I think for breakfast, it'll go to like, 160. And then it'll go to like, 120. And then, you know, just like, stay stable. Like if it goes low. The only thing with like lows is that once it goes low, it'll take like time to like, go up. But like, what's it up? What's up? It'll be like, 140 for an hour, which I don't like,
Scott Benner 1:16:52
right. Arden has been eating late at night lately. And she's gotten a couple of lows, like five o'clock in the morning. But this is like the last six hours. So see if you can see that.
Arisha 1:17:04
That's actually like pretty good. Yeah. Is that about like yours? Or? Yeah, pretty much. Okay. Well, that's like that's like that for the night. And then it'll go like to 140 after breakfast.
Scott Benner 1:17:17
Well, yeah, oh, she's trust me. We didn't like oh my god, we went to the chicken and waffle place. So here's what happened. Here's what happened yesterday. We went Christmas shopping. She wanted to get my son like, nice. We think my son's gonna move to take a job. And he's always wanted a little fish tank like so. We went out to buy him a fish tank. But then when we were there, there were puppies. So she has all the puppies that she got all like, Dad, we have to save all the puppies, which is weird, because there's the thing you wouldn't think about art and if you've heard her talk all the time, but she was just like, we have to buy them all and she wasn't kidding. And I was like no. And she got all excited. And our blood sugar started to go up. But it turns out her loop wasn't connected, right. So the loop wasn't working. So then she she started to rise up. And and because it wasn't connected, it wasn't bolusing. So while we're in the puppy store, the puppy store was the pet store. It went from like Shahar butcher went from like one around 100 to like 150. And by the time we got out of there, we didn't realize that it was like 170. And our plan was a fish tank, chicken and waffles. And so then we were making this big Bolus going to chicken and waffles were like, This is not going to work. You know what I mean? So we didn't, her blood sugar went up to like 200. And it took us a couple of hours to fix it. And it was just from the it was from not addressing the drunk the adrenaline rise from seeing the puppies. As crazy as that sounds.
Arisha 1:18:39
Does she have an AMI pod?
Scott Benner 1:18:42
She's wearing on the pod dash and using the loop dev version of loop right now. I think she's gonna go to loop three, when that becomes available. Like that's the next thing. We were using free free APS for a really long time. And that was that was great. Anyway, it's you know, it's an algorithm. It's a do it yourself algorithm. But it's she have Dexcom she's Dexcom G six. Yeah. So her system is very similar to yours. Honestly, the algorithm is running yours is different than the algorithm that's running hers. It's exciting for free to get the Omnipod five for you, like really excited about that when it happened.
Arisha 1:19:23
Um, I think well, I was waiting for it for like, a very, like long time because like, they told me like, three years ago, oh, you're gonna get sued and like, I got it like two months ago. So I mean, I guess I was excited. But the thing was, I was really upset when I got it because it ruined my disbalance a little bit like it was annoying how it wouldn't go below 220
Scott Benner 1:19:47
Oh, okay. Good, because it was a different way like it yeah. Did it take a while for it to get working properly? Yeah, yeah.
Arisha 1:19:55
But like after that one week of like bad blood sugar. It's it works really well and it
Scott Benner 1:19:59
worked well. for you, but it was hard for you to look at that half. It's hard for everybody. It was hard for you because you are accustomed to something better, right? Yeah. So it learns in that first time. It probably and you were a little more aggressive. It sounds like when your mom put in your Basal rates, it sounds like she moved them up a little did she listen to my episode about it? Do you know the setting? She should have if she didn't have a nice, I have a nice three part episode about setting up Omnipod. Five. That's neither here nor there. Okay. You were delightful. I'm super excited. You reached out on your own. This wasn't your mom's idea.
Arisha 1:20:32
It was my idea.
Scott Benner 1:20:33
I really appreciate you doing this. And I'm glad we snuck you in. This was a cancellation today. You know, if we didn't do this today, do you know when we would have done this
Arisha 1:20:42
in August? I know because So basically, I was looking for my appointment for like, I thought I would look at it by going to the link and I was like, Oh my gosh, there's one open like next week. I like clicked on it,
Scott Benner 1:20:57
I was out. Let me tell you the other side of it right, and then I'll let you go. I was out somewhere with my family doing something. And I'm trying to like not do so much before Christmas. But I have to I have to take Arden back to school in January. Now it looks like my son might have to move pretty far away. So there's gonna be a lot going. So I have to like, produce a lot of episodes and get them ready ahead of time. So I can leave for a week. And so I thought, well, it's great because at least I'm not recording for these days, because I took off before Christmas. And then like I get an email. And it's like, a Russia is on and I'm like December 21 I'm like that little like I thought I thought was like that little like she found that day, because I didn't go block it when somebody cancelled. But I was I said to myself, my wife said, Are you gonna make her change? And I'm like, now I'm like, she's like, she's like, 13 I was like, I'm not gonna make her change it. So anyway, I wasn't supposed to record today, but I'm happy that I did. This was really great. Did you have a good time? Yes, yeah. Okay. I'm going to shut off the recording and ask you if there's anything about what happened today that you didn't like or that you're uncomfortable with? And you can feel completely free to tell me okay. All right. Well, thank you very much for doing this. A huge thank you to one of today's sponsors, G voc glucagon, find out more about Chivo Capo pen at G Vogue glucagon.com forward slash juice box. You spell that? G v o KEGL. You see ag o n.com. Forward slash juicebox. I also want to thank us men and remind you that you can get started today with the place the US man that I'm talking about is where we get our diabetes supplies you can do right? Insulin pumps, diabetes testing supplies. Dexcom g7 FreeStyle Libre three. Anything you can think of. They probably have it at us med.com forward slash juice box where you can call them I know some you don't you don't want the internet 888-721-1514 And a huge thanks to a Russia. She was absolutely terrific. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast.
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#822 The Math Behind Setting Insulin Sensitivity Factor
Scott and Jenny break down the math behind setting your insulin sensitivity factor. I really wanted to call this the GOZINTAs of ISF.
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+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
- 00:02:36 Understanding insulin sensitivity factor.
- 00:10:43 Adjust insulin sensitivity for accuracy.
- 00:12:15 Managing diabetes requires adjusting for variables.
- 00:20:42 Adjust insulin needs as life changes.
- 00:26:01 Importance of insulin sensitivity factor.
- 00:28:31 Empowering, informative podcast for diabetics.
Scott Benner 0:00
Hello friends, and welcome to episode 822 of the Juicebox Podcast
Hey everybody, today's episode is Jenny and I helping you figure out your insulin sensitivity factor. There's a little bit of math involved. Don't worry, it's not really like super confusing or anything. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. We're becoming bold with insulin. If you like Jenny and you want to hire her, you can she works at integrated diabetes.com. Are you a US resident who has type one or is the caregiver of someone with type one? Oh, if you are, this is great news, because you can go to T one D exchange.org. Forward slash juice box and fill out the survey. Every completed survey benefits the podcast and type one diabetes research T one D exchange.org Ford slash juice box. At the end of this episode, I'll tell you about more Juicebox Podcast episodes and series that will help you with insulin sensitivity factor. So hang out to the end
this episode of The Juicebox Podcast is sponsored by touched by type one now you can find touch by type one. Now you can find touch by type one at their website touched by type one.org. You can find them on their Instagram page. And on Facebook. Touched by type one has great programs like their annual conference which I speak at sometimes their awareness campaign Bowling for a cause they're dancing program called dancing for diabetes, the D box they have a golf outing touched by type one is helping people living with type one diabetes. And they'd like you to just to check them out touch by type one that work. That's it for the ads today. So I just wanted to tell you that if you're enjoying the Juicebox Podcast are finding it helpful. The best way you can support the show besides clicking on the sponsor links, or typing them into a browser would be to share the show with someone else. A doctor, a friend, a stranger, somebody who you think may enjoy or benefit from the Juicebox Podcast. Hey, Jenny. Hey, Scott. We're going to talk about setting up insulin sensitivity and getting your numbers right where you start and and how you can figure out where to go from there. Fantastic. How do we set up insulin sensitivity?
Jennifer Smith, CDE 2:51
Yeah, and I like that you call it insulin sensitivity factor or what you might see written down as I S F insulin sensitivity factor. It's also called correction factor. So if you've heard any of those words, it's all representative of the same thing. This idea
Scott Benner 3:11
correction factor, insulin sensitivity and insulin sensitivity factors seem to be the three ones that get used most in the zeitgeist they all mean the same exact thing.
Jennifer Smith, CDE 3:21
Yes. And from an abbreviation most often you'll see I SF I igloos s Sam F. Frank, there you go.
Scott Benner 3:30
I think that you weren't being clear with your enunciation.
Jennifer Smith, CDE 3:33
I thought that Yes.
Scott Benner 3:38
I think more likely, you're just trying to cover for my bed.
Jennifer Smith, CDE 3:42
No, not at all. Not at all. i It's funny, because I say that mainly because just as a side note, I hear I get so many like codes for seeing people's data and whatnot. And if we're talking, I always make sure that I've heard them correctly so that I can input it the right way. Otherwise, the program's like, no, that's not right. And then, you know, so anyway,
Scott Benner 4:06
I just thought I had a weird accent. You're like, there's no way people understood what he just said.
Jennifer Smith, CDE 4:10
If anybody has the weird accent, it's me. So I think
Scott Benner 4:13
of it as insulin sensitivity, I have to admit, when Arden was first diagnosed, I thought of it I guess with the old terminology, older terminology, and then going to a pump brought me to insulin sensitivity factor. And then I think going into looping made me say just insulin sensitivity. And it's not it's more about how I think about it than it is about what you're calling it. If that makes sense. So correct. And
Jennifer Smith, CDE 4:38
that's that's kind of why I like I like I like both terms. Sensitivity, I think gives you more visual to response, right? How you're going to respond to insulin to take your blood sugar to the place you want to get it to. But now Don't get too low, right? correction factor I like because it really, it implies why you're taking that insulin, you're correcting the number that you don't want to be sitting at back to the place that you want it. So I think they're both relative, obviously.
Scott Benner 5:18
But there is no, I don't want to get bogged down in this, but there is value in the words you use, and how they make pictures in your mind. And for me, calling it insulin sensitivity. It just makes the most sense to me. So okay, so what is the insulin sensitivity?
Jennifer Smith, CDE 5:38
Yes, so insulin sensitivity is how many milligrams per deciliter or millimoles, your blood sugar will get dropped by one unit of insulin. Okay, so if your ISF is 51 unit of insulin should bring your blood sugar down 50 milligrams per deciliter, right? Or I say 50 points just to make it easy. From where you're starting? And is it instantaneous? No, it's not, that we've talked about is this, it's rapid insulin, but rapids a bad name, it's going to take some time for that to happen. So you're gonna have to give the correction a little bit of time to get working, see its action. And to fully evaluate, does it bring you back close enough to the target that you're aiming for? within a defined period of time, which may be the active time of rapid insulin,
Scott Benner 6:39
right? Is there an when you're figuring this out? What's that length of time that you consider? Like how long because I can remember, I'm just going to keep using this as an example because I used it in other episodes, but are done with the school. And her sensitivities changed at school, and we had to, we had to change them. So that I just went back to basics, I did what we talked about in the basil episode I got, I made sure I got her basil about where I thought it was gonna be, I set up her carb ratio about where I thought it was gonna be. And then I had to get her insulin sensitivity, right. And basically, what I did was I put her she was sitting very stable, like a, I forget where it was, she was sitting very stable, like 180, while we were figuring this out, and I just gave her a unit of insulin. And I said, Let's not do anything. And we'll wait a couple of hours and see where you end up. And then I that's where I started building from that and the math.
Jennifer Smith, CDE 7:37
Right? And from a fairness standpoint, for any of those people who are using algorithm driven pumps to really analyze correction factor on its own, you have to turn the algorithm off. And I did you write it? I know you did. But just from a, from a reference point, because otherwise you don't, you don't want something else helping you along the way. You just want a point of this as the insulin, everything else was left turned on, Basil was working like it should have. This is where it ended up getting me right. And it you know, an asking of time, not only in that example, were you looking at does the rate show that I used work? Did it get her to the point of where I wanted, you could also have kept it you could have kept it going for a little bit longer to see the point of stabilization, like where did it land at the target? How many hours after the correction was that? Yeah, that gives you a little bit more visual of, of your insulin on board time or your active insulin or duration of insulin action, right? Let's say by three and a half hours after that Bolus, she landed nicely where you wanted. And then she was like, Well, I'm just going to sit on the couch and watch a movie. I'm not eating anything. There was, you know, again, you left your algorithm off. If it settled there, lovely. One, your basil is right. But to the Bolus action time was more defined, you could see where it hit and stabilized. That should be about your active insulin type. Yeah.
Scott Benner 9:16
Yeah. And that's not easy to come up with either No, and especially because those are dummy settings in normal pumps. And in and if you're using an algorithm at this point, now, if you're using the loop, okay, you can figure it out that way. I don't know enough about how control IQ works. And Omnipod five is, you know, kind of does its own thing. So that's even hard to know. It's proprietary.
Enough. There you go. But for me, I Arden was looping at that moment, when we did that I shut the loop off. And I just ran it like a regular pump. I was confident in the base that we had set up. And so I think in the end that one unit moved or Like 45 points. And that's and now Arden's insulin sensitivity is set up somewhere between 41 and 45, depending on the time of day. And that gives the algorithm, the wiggle room, the wiggle room, it needs to do what it needs to do. Like, if I made Arden's insulin sensitivity, one to 40. And she was on a regular pump. And it was just like that constantly. That would be too aggressive. Sure, yeah. So she'd get low at night, if I did that. Right. Anyway. Okay, so what's the math on this one?
Jennifer Smith, CDE 10:36
So what's the math on this? This is where there's another rule that comes into play. Many people start by just saying it's the 1800 rule, right? So you're essentially going to take, again, what is your total daily dose, and you're going to divide that into 1800? To get a starting point for your correction or your sensitivity factor? So if we take 30 units of total daily insulin, and we divide that into 1800, what are you going to get?
Scott Benner 11:07
I'm doing it right now. Oh, really? 8,000,400? And? I have a 6060.
Jennifer Smith, CDE 11:18
Correct? Absolutely. That's easy math, right. 30 into? Yes. So you're gonna start with a 60. And let's say you're, you've looked enough at having corrected insulin, or corrected blood sugars, and you're like, but my factor is already at 55. And my corrections don't work, or my corrections at night, work really awesome at 55. But during the daytime, I'm getting low with this 55. So maybe 60 In the daytime is more what you need more what the math tells you. And maybe at night, you just need it to be more aggressive, the lower the correction factor value or sensitivity factor value, the more insulin you're going to get,
Scott Benner 12:01
right? Also, it's super important to say that if your blood sugar's 130, and you wished it was 90, and you've got your sensitivity factor set up, it was you know, one unit moves me 60 And you and your pumps target is at 90, you're 16 you're like, hey, Bolus, it's gonna take a fraction of that amount of insulin to get you to 90 Correct. But if your blood sugar's 250, and you want to be 90, that factor might not work. Because you're a good point, right? Because there's a lot of other variables that we're not thinking about. And they could be anything from undigested food to a bad, a miscalculated meal Bolus that you're still dealing with, you could have ketones, which would come into a point, you might be dehydrated, there are so many things. So so you're getting these settings set up in. I don't want to say perfect, but near perfect conditions. They work in my perfect conditions. But now when I'm out in the world fighting with it, it's almost like learning jujitsu, I imagine probably you're on them on the mat, it probably works because the other guy across from us doing the same thing. But when you get into a street fight, and you're Indiana Jones, and you know, and you start going, I'm going to do jujitsu, and then Indiana Jones pulls out a gun and shoots you. And then you go, Oh, well that he just didn't help as much. So, like So given the fact that I'm now imagining that a lot of these people have never seen Indiana Jones.
Jennifer Smith, CDE 13:24
But when so sad, go watch it. Yeah, exactly.
Scott Benner 13:28
But but the point is, is that you get these things, right. And then you have to take them out in the world and actually use them. And, you know, variables change.
Jennifer Smith, CDE 13:37
I like that. What you brought in there in terms of a variable, because it's one that I talk to people often about when we're looking at settings and adjustments. My questions often go to, well, this correction never seems to be working well. What are you eating at 10 o'clock at night, your corrections overnight don't work? Well, they may not work, because the data isn't clean, for lack of a better right. If you're sitting down and eating a whole pizza at 10 o'clock at night, and then your correction at one o'clock in the morning isn't working very well. I can guarantee that the reason it's not is because there's food in the picture that your correction factor doesn't know is there. Right? So you're you're unfairly judging this sensitivity in a window of time where you're going to be more resistant.
Scott Benner 14:33
And total daily insulin. We're just not we're not saying it for some reason, but total daily insulin you can get out of your pumps settings. Yeah, tell you how much and you can't just don't just look at yesterday. No, yeah. Because look at yesterday, look at the day. I mean, I don't know how far back do you go to come up with a real one for you? I usually like to look
Jennifer Smith, CDE 14:53
at an average of about seven days in general, especially if it's seven days worth of pretty Typical day, you know, somebody's just come back for vacation and their past seven days is all jacked up. Because, you know, it's been vacation, right? It is what it is. That's not valuable, true insulin amount information, I might need to go back further than that to more typical days and get an average there.
Scott Benner 15:21
Do you knock out the outliers? Like if, if you look at seven days and five of the days, you're right around 50 carbs, or and, and you look Oh, yeah, I used 50 carbs, and then ended up being this much insulin. Let's just say it was just keep using 50. It's I use 50 units of insulin on Friday. He's 50 units of insulin. On Thursday on Wednesday, I use 48. On Tuesday, I use 52. But on Monday, I use 12. Like, do you knock that one out? When you're doing the average? That person, right? Yeah, absolutely. And the same thing as if on Saturday, you were at a birthday party, you're like, Oh, my God, I used 90 units of insulin. So okay, so you take your kind of AV, you got to do an average of those days. Correct. All right. So much math. This is why the Pro Tip series.
Jennifer Smith, CDE 16:09
I know that there is a lot of it. But I think this is important to go along with that. Because I know we did the protests a while ago. Jimmy, holy cow, really? Wow.
Scott Benner 16:23
When we started, there was
Jennifer Smith, CDE 16:24
a while ago, and I'd have to go back to them and listen yet again to remember exactly, but I don't know that they're obviously we're doing this because that wasn't a big piece of
Scott Benner 16:34
well, people. People asked for the math, right? Like, I want to know the math of setting up my Basal my insulin to carb ratio, my insulin sensitivity. And I just keep telling people, I would just go listen to the Pro Tip series, because in my mind, it's mindset, like so much about managing diabetes as mindset. And the math is not not important. It's very important. And so here are the episodes. Right? There's the the five, what is it? How many rules are there? There's the rule of see, I already forget, we've been doing hundreds the rule of 500 for the insulin to carb ratio, right? Yes. Okay. And this one's the 1800 rule for the insulin sensitivity. Yes, and the Basal was.
Jennifer Smith, CDE 17:15
And the Basal was not really a rule, it was based on weight to get either a total daily dose of insulin and then break it down or based on weight. And just looking at what your Basal needs would be all of them factoring in, like age, as well as where you are in activity level.
Scott Benner 17:37
And you hear me say all the time that I think managing diabetes is about its timing and amount, it's about using the right amount of insulin at the right time. So yes, you need the math to know where to start. But then you have to look at what's happening to adjust your math to fit the honesty of like, you know, of the fight you're in, not just what you hope the fight was going to be. You have to you have to take account of the variables in your life, your level of activity, the way you eat, even if you're a hydrated person or not, like you know, we say things like be hydrated. Like, that means that everybody here is gonna go like Oh, okay, and then start hydrating, but I'm going to tell you that a week ago, I promised myself I was going to drink more water. And last night, I went to the bathroom at the end of the day. And I was like, did I drink any water today at all? So so it's nice that good. So it's nice to say you're going to do it. But the truth is, you might not be doing it. And if you're not hydrated, your insulin won't work as well as an example of something that could change, change the urine.
Jennifer Smith, CDE 18:39
And in terms of that activity level, I think it becomes really important. You know, we talk about these rules, 500 1800 whatever, but I think just we you had asked in the Bolus one about 500, could we make this more aggressive with another factor? Could we make it less aggressive? We could, I mean, that is the strategy to in terms of figuring out this 1800 rule. Like I myself actually know that I'm, I'm closer to the needs if I use like a 2000 rule, because of the activity level that I'm at because metabolically I know where my sensitivity lies. And so my insulin needs would, I would be very much too aggressive if I use the 1800 rule and it's a middle ground there's like 16 1700 makes your makes your insulin sensitivity factor more aggressive write a lower number, you get more insulin, whereas like 2000 it makes it more conservative.
Scott Benner 19:38
Do you remember the conversation we had about Arden because do ya cuz you were like you You told me to go with a lower number. And because that we started getting mixed in with the food that she was going to be eating it. But then the interesting thing was in the first handful of days at college, she needed a more aggressive insulin sensitivity factor but then once this the As the day started becoming repetitive, and she was getting a lot more activity, I had to back that off, right. So in the first four or five days before she was really moving around the campus, I had her all the way at 40. And then when she started getting more active, I had to move her more like 4344 45, depending on the day. And that's, that's her insulin sensitivity was 4344. Also, I don't want people to get caught in the idea of well, these are my settings, and then my life change. Now my a one C seven, but it doesn't matter, because these are my settings. So I guess diabetes, is this happening to me your life is changing. Your body is changing, something's changing, you have to meet that need. Correct? That's it. Yeah. And just don't sit sedentary and go, Okay, well, things have changed, but I'm not going to do anything about it. Like you have to do something about it. You know,
Jennifer Smith, CDE 20:53
right. It's so mean life is life is ever changing. It is yeah, you will continue to grow, you will continue to get older, we don't unfortunately, get younger. Your insulin needs will shift and change, you have been a really active college student. Now you've moved into taking your first job, and it's a desk job and, you know, you will have to shift and adjust. You really
Scott Benner 21:18
will, yeah, don't don't, please don't just look at your stuff and go Well, this is this is what's happening now like you can, you can affect those things. And, and I think you can also not to beat a dead horse, but the Pro Tip series will put you in a mindset about managing insulin. I mean, this stuff will be great for you. But it'll really, it'll take you to another level. I mean, those that is really a long, the Pro Tip series ends up being what is now over 25 episodes, I think, but it's just a very long conversation between you and I about what it means to take care of your diabetes, you know, right? Like, I know, you
Jennifer Smith, CDE 21:54
imagine if we had done all of that, that would have been a very long discussion.
Scott Benner 21:58
And insane. Well, no, I mean, it never would have worked. Like you need to like you have a conversation. And you know, people don't know how you and I do this, but like these three episodes were all recorded at the same time. And so you'll see a flow through between the three of them. But the prototype series was recorded over a number of weeks in the beginning, and then we added 15 More episodes over the years. And even the way you talk about diabetes is different than the way you used to. It's not like in, it's not in its tone, your tone is different. And you're more mature, you've had more experience talking to people, you have more like anecdotal like conversations you can reach for and things like that the same things happened to me. I mean, you know, you know, we joke about it all the time. But, you know, you think it's, you know, your eight year olds insulin needs and how to handle them or like, you think they're hard while you're doing it. But when your eight year old turns 14, you'll be like, Oh, I wish the kid was eight again, because that was really easy. And but you then you have those experiences. And then when you're having a larger conversation, the things you think to reach to to make your point become more mature as well. And so I think I think it's been terrific. And, and I think this will add to it. But absolutely, there's more,
Jennifer Smith, CDE 23:16
I think I think the other thing in each of our conversations, too, is that you are very good at knowing the episode number most often. I'm like, I know, we talked about that in another episode. But I think it's nice, because we can continue to refer back and say, Hey, if you want more about this, go listen to this, right? It's really in depth.
Scott Benner 23:38
Yeah. And you're going to need it too. I mean, can you do the math and set it up? And just do what you do? And every six months, look at the math again and change it? I mean, if that's what you want to do, I think that's probably viable. And you'll probably end up with I mean, if you did the math or kept the math up to date Pre-Bolus Your meals and took into account different foods. You probably have an A one C in the mid 60s, right? Yeah. And and as your life changes, you got more sedentary or your eating habits got worse, you might see your agency go up if you didn't adjust. Or if you started walking, you might see it go down a little bit. Right, you know, but but the rest of it the like what to do in the moment without having to think about it. Like I think that's where the podcast shines. Like I think that's where you hear these conversations over hours and weeks and months. And something happens and then you just sort of do the right thing. And you almost don't even know why you're doing it. It's just you heard it talked about so many times. It's just what occurred you to do in that situation. Right? Yeah, right. That's excellent. I can't thank you enough. It's actually as the end of the year comes generally I usually Thank you privately but here I mean, listen, the podcast is it's never going to be what it is without you. So Oh really? apprec No, thank
Jennifer Smith, CDE 25:00
you absolutely no, this is this is wonderful and I'm, I'm proud and really glad that I have the opportunity to help you. Thank you
Scott Benner 25:09
means a lot your friendship and your and your participation mean a lot to a lot of people, but it means a lot. So thank you. Thank you. Well, obviously, we're gonna thank Jenny and remind you that she works at integrated diabetes.com. If you'd like to hire Jenny, that's where you will find her. I'd also like to thank touched by type one, for sponsoring this episode of The Juicebox Podcast, please find them on Facebook, Instagram, and it touched by type one dotwork. I hope these three little episodes have been valuable for you. If you're thinking three episodes, what are you talking about? Well, this was part of episode 828 21 and 822 820, the math around Basal insulin 821 The math around insulin to carb ratio. And of course, this episode was the math around your insulin sensitivity factor. I'm gonna tell you a little more in a second. But thanks so much for listening, I really appreciate it. Now that you understand better how to get your settings close to where they need to be, you should probably learn the rest. If you're new to diabetes, check out the bold beginning series. And if you've been around for a while, and you're feeling comfortable, and you understand the basics, head over to the diabetes Pro Tip series. These are available in your audio app at juicebox podcast.com. And there are lists of them in the feature tab of the private Facebook group Juicebox Podcast type one diabetes, all of this information is absolutely free. It's accessible in your audio app online, or wherever you're comfortable listening. Check it out. You can do it, you really can't. There's a diabetes, we have a defining diabetes Episode Episode 408, called insulin sensitivity factor in case you want to learn more. There's an episode 295 Defining diabetes, insulin resistance, which might help you understand why this setting is important. And don't forget, if you're using an algorithm based pump, understanding your insulin sensitivity is incredibly important in in getting those settings correct as well as as well as Basal insulin to carb ratio, everything we've talked about in these three episodes. But if you want to build on what we've talked about, please go find the diabetes Pro Tip series and the other collections of information within the podcast. I'm going to just I'm going to read you something before you go because I understand that I'm I'm saying here's some information go check out other stuff. And I know a lot of people charge money like they they give a little bit of information and they want you to pay for the rest. I'm not doing that. The entire podcast is free. It always has been it always will be. There's there's no hidden costs anywhere. There's no pay walls, it's all on your time you can do it you know as quickly or as slowly as you want. As far as listening goes. I want you to go find these things because I know they work. So I've gone to a website that keeps track of the reviews for my show. A one C 5.6 Just like you promised from 7.2 Scott empowered me to trust my instincts when dosing and to be bold with insulin. I love listening to this podcast it makes me feel not so alone. I'm just gonna click on More here for you saving my soul never in a million years that I think I would be here but I guess who does this podcast and it's private Facebook group saved my soul in a time when I didn't think it was possible. The earthy, stripped down conversational aspects of Scott make you feel empowered. I'm a type two with a type one granddaughter learn so much from the podcast. This podcast has changed our lives. Just started listening, you're going to feel empowered, positive parent easy to understand management information with a side of laughter to reduce burnout. I'm telling you right now I could read these all day. I'm not reading them to you to boast. I'm reading them to you. So you'll go find the other series diabetes variables, mental wellness, diabetes pro tip F there's just they're there. Just go take please. I made them for you. Go listen to them. juicebox podcast.com. On top in the menu, you can see a list of a bunch of the series where like I said in the private Facebook group, which is a font of information and support of its own Juicebox Podcast type one diabetes. I hope you check them out. I hope these podcast episodes have been helpful for you. I'm going to be back very soon with another episode of The Juicebox Podcast. Thank you so much for listening
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