#757 Arden Is Back
Arden is back in an episode recorded the evening before she left for college.
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Scott Benner 0:00
Hello friends, and welcome to episode 757 of the Juicebox Podcast.
On today's episode of the podcast Arden has returned. My daughter Arden was first on the podcast in August of 2021. Wow. Over a year ago, sorry. I know I said I've got her back on. I didn't know it was gonna take a year. Anyway, she was first on episode 517. I think it's called Meet Arden. And today she came on. Well, you'll see in a second but much like all of the episodes, I had no idea where this was going to go. I just want my intention was to have Arden on and we were going to talk right before she left for college about some things that I wanted to reinforce with her but you know, it didn't go that way. Anyway, while you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan, or becoming bold with insulin. If you have type one diabetes, or you're the caregiver of someone with type one diabetes, please go to T one D exchange.org. Forward slash juicebox. Join the registry. complete the survey when you complete the survey. You're helping people with type one, you're helping yourself and you're helping the Juicebox Podcast T one D exchange.org forward slash Juicebox Podcast this show is sponsored today by the glucagon that my daughter carries G voc hypo penne Find out more at G voc glucagon.com. Forward slash juicebox. today's podcast is also sponsored by Dexcom, makers of the Dexcom G six continuous glucose monitoring system, you may be eligible for a free 10 day trial of the Dexcom G six go find out@dexcom.com forward slash juice box. Okay
Unknown Speaker 2:09
Wait no. Why are you moving away from me? Because I don't want our microphones to pick each other up.
Arden Benner 2:14
Oh my god. I'm gonna go wherever you get the nice chair. My office. It's my last day here. You don't know what can happen to me.
Scott Benner 2:27
Is that how you want to start this? Okay, so I will let you fix your wedgie. Okay, got it. Terrific. It's been a while since you've been on the podcast. People ask for you to come back all the time. I try not to bug you about it. All you do. I do bug you a little bit. Talk right into that thing.
Arden Benner 2:55
Next to me. Talking to
Scott Benner 2:59
me my drink please know this one. That's fine. Do you want this one for now? Yeah.
Arden Benner 3:06
Thank you just said.
Scott Benner 3:11
So it's late at night. And we're getting ready to go to sleep and sleep for a few hours and Levin 17 to be exact. And then we're going to take you to school in the morning. long drive. about 15 hours taken to cars. packed full of stuff. Yes. You think you're ready to go?
Arden Benner 3:29
I'm good.
Scott Benner 3:31
You're definitely ready to go. Do you feel nervous? No. Okay. So I've been wanting to do this with you. So that we don't have to do it for real. You don't even
Arden Benner 3:44
know. This feels for real to me, are sitting right in front of me.
Scott Benner 3:49
I mean, like, you know, I'm recording it, which is odd. But I don't want to I don't know. I've tried my best over the years, right to pass off your stuff to you very slowly. And for years people have said, either that's a great idea, or that's not going to work one or the other. So I guess I want to ask you how ready Do you feel to take care of your diabetes stuff? By yourself? No, I
Arden Benner 4:16
can 8.6 out of 10 That's not bad. I mean, I had a seizure so well, that brings down my skin. Just like my point.
Scott Benner 4:29
What was the short one? Are you gonna tell people about that? Oh, yes, either. Yeah. Okay. Well, we'll talk about No, I feel like all right. What do you feel like?
Arden Benner 4:39
I don't have to cut this out. Why? I was gonna say I feel like some of these people might take it more seriously than I do. Well,
Scott Benner 4:47
do you think you don't take it seriously? No, I
Arden Benner 4:49
take it seriously to the amount of serious that needs to be taken. Okay. Yeah. So I don't think that anybody's gonna be put off. Oh, that's what a lot of people when they're like, they're just so serious. And I'm like They make a joke out of it. Well,
Scott Benner 5:02
I don't know what to say. So we'll talk about that in a little bit. Alright, so first things first, you are going to go to a hotter climate. And you're going to be moving around more more than usual, right? You're going to be taking buses instead of driving places. And we expect there's going to be some adjustments that need to be made. So are you worried about that?
Arden Benner 5:28
No, I'm not worried at all.
Scott Benner 5:31
If I said if I dropped it right now, just I went right over. Heart attack, probably. Okay. Okay. And that happens to be a stroke, or a stroke. And you
Arden Benner 5:40
maybe like an embolism? Is that how you say it?
Scott Benner 5:44
I think it is. Yeah. Are you showing off your your Grey's Anatomy,
Unknown Speaker 5:47
a lot of Grey's Anatomy. Sure. And so it has to restart because Derek's gonna die soon.
Scott Benner 5:55
It if you were completely on your own, and you got to school, and found that you were having pretty consistent low blood sugars. Would you know what to look at?
Arden Benner 6:06
Yeah. It wasn't really late.
Scott Benner 6:09
It is late here. But on your settings, would you know what to do?
Arden Benner 6:14
The I'm sorry. I would, I would see the word now. Click it. Yeah.
Scott Benner 6:20
Yeah. What would
Unknown Speaker 6:24
you want to look
Arden Benner 6:26
like the insulin to carb? Not that it's the, um, I know, you could like take basil away and all that, right. But that's not even what you're talking about. Hold on. Let me grab my cellular.
Scott Benner 6:36
Okay. So you think one of the ideas might be to lower your Basal make your basil weaker? Yeah. And the other thing
Arden Benner 6:47
is the is it the last stuff on here? But is it the insulin sensitivity? Right? Yeah.
Scott Benner 6:56
Right. And then of course, the insulin sensitivity? If it was, let's just make up a number, say it was 50. Right. And we went through this right? And you were getting low. One of
Arden Benner 7:05
them's like, you make it low, you're gonna get Ha, no, I'll text you.
Scott Benner 7:10
But would you make it first time? But would you make it 51? Or 49? If you if you are getting low
Arden Benner 7:17
49? was a wild guess? I don't know. I'll text you. Okay, the first time, another very long post it note. And then we'll be fine. So
Scott Benner 7:28
your insulin sensitivity, right? I knew that word is one unit moves you 50 points if the number is 50.
Unknown Speaker 7:39
Okay, so we
Scott Benner 7:41
would want it to move you not as far if we wanted it to be weaker.
Arden Benner 7:48
It makes sense why I said 49.
Scott Benner 7:50
Now the lower you make the number, the more aggressive it's going to be. The higher you make the number, the less aggressive it's going to be.
Arden Benner 7:59
When you speak to me the words go in one ear and out the other. I don't know how these people you just said something and my brain went. Okay.
Scott Benner 8:10
So we took screenshots of all your settings. And we'll send them to me. And then over the next couple of days as you settle into your, you know, routine, we'll make adjustments where we need to make adjustments. What's the thing you think you'll struggle with the most?
Arden Benner 8:27
Talked about life or diabetes, diabetes? Oh, okay. Well, um, because I was gonna say choosing an outfit to wear. But that's not the answer. For I don't know, probably just at night, over I'm not like, anything that happens to me during the day I'm not scared about because I know, I can just fix it. But at night, that's the only thing just because you know, I won't be awake. So you know, yeah, you could in your sleep.
Scott Benner 8:53
You could it in your sleep. That's 100% True. Yeah. So we have roommates that you'll have a roommate, and you'll have three. Okay, so somebody in your room and then two more people in your suite. Yeah. And we're gonna teach them like, Have you thought about this? Like what you want to say to them? No, they all know, right?
Arden Benner 9:13
Yeah. Okay. No, I gotta tell you that. Did you gonna be a surprise?
Scott Benner 9:17
No, I know you told them but did you tell them there's going to be stuff we were going to want to explain said
Arden Benner 9:21
that. My dad wants to sit down and talk to you guys. And they said, Okay, sounds good. All right. Well, I don't know what they sound like. So I just did that.
Scott Benner 9:28
So we're going to we're going to talk with them. We'll show them how to use the the G vo Capo pen case you need that right on. There's gotta be no one line. So willing. Yeah. Okay. So Alright, so let's talk more about like day to day stuff.
Unknown Speaker 9:48
Okay, okay.
Scott Benner 9:49
So you're gonna get up in the morning. Do you think you're going to eat right away? Yeah. What do you think you'll get up and eat before you go to class?
Arden Benner 9:57
I guess it depends what class I have. I have classes at different times every day,
Scott Benner 10:02
right? So your fasting blood sugars are really good.
Arden Benner 10:05
Oh, thank you. Yeah, that's quite a compliment. It is quite the
Scott Benner 10:09
opposite meaning you can get up in the morning and accomplish a lot without your blood sugar rising or falling. Have you noticed that? Yeah. Like you can also sleep in in the morning without getting too low stuff like that. Correct? Right. A lot of people can't do that.
Unknown Speaker 10:23
Oh, so
Arden Benner 10:25
that must. Probably does. Sorry, guys.
Scott Benner 10:29
So so if you got up early for an 8am and went from an eight to 10, I could see you being able to pull that off without eating. Yeah, I have that twice a week. Okay. And then you have other days where you have an 11am Do you think?
Arden Benner 10:46
On real,
Scott Benner 10:47
just that gummy bears, right.
Arden Benner 10:48
Yeah, it's still I'm fine. Whatever, we'll be fine.
Unknown Speaker 10:50
What's your butcher? Just,
Scott Benner 10:53
it's at why is it beeping at 80?
Arden Benner 10:57
You're asking me a lot of questions. I don't have the answer to
Scott Benner 11:00
I did lowered a little bit because you're going away. But I thought I lowered it to 75. That's coming back up. I can see. So you know, everyone can calm down. I don't think anybody was not calm. It feels like you weren't. So you could probably get up in the morning and eat before the 11am if you want it to if I'm awake. You're also not a young person, a breakfast person. Really?
Arden Benner 11:17
I don't like to eat like before, like 1030 in the morning, right? I feel sick. So that's
Scott Benner 11:28
here to tell people why you just acted like that a monitor started the dam. And I think she thinks that's the one that's recording the show. But that's one we
Arden Benner 11:34
can't we already nine minutes into this. We cannot start again.
Scott Benner 11:39
It's fine. We're not gonna have to start again.
Arden Benner 11:40
Oh, you can edit? Yeah, why would we add it? I'm saying you could edit it if we if it is
Scott Benner 11:47
if it got messed up where we good. Okay, so I see that. So you're so what are our real concerns? The heat is going to be different. So like your real concern, diabetes concerns. They still feel like you're a conceit. Walking. Right? Yes. Okay. I agree. How are you going to prepare for that?
Arden Benner 12:13
I'll bring a fan. I'm just kidding. Um, what do you um, you know, I'll figure out how it goes. And then I'll fix it after that. I don't know how else you would prepare for that. There's no preparation yet.
Scott Benner 12:24
So you don't see anything different than normal? You're going to walk with some sort of food some sort of fast that things do that. Yeah. You'll have juice with you and food. Yes. And that's pretty much it. Yes. Now. You've been taking care of your blood sugar. Pretty much by yourself for like, last year, I'd say Right. Very well. Yeah. Been doing a great job. You really have got one snafu. Almost no biggie wasn't almost that. I mean, okay. Was it was bad, right? Do you can you tell tell me what you remember the evening and I'll fill in the details.
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In just a few minutes, you're going to hear art and I talk about a low blood glucose incident that she had very recently. And I'm just going to tell you that when you hear the story, you're going to recognize very quickly how bad it could have been, and how lucky we were about how when and you're gonna realize how much the Dexcom G six had to do with stopping a bad situation from becoming a disaster. If you're using insulin, I can't recommend enough the Dexcom G six, head over to dexcom.com forward slash juicebox. To find out more about the glucose monitoring system that my daughter has been wearing for years. And the one that helped us in the story you're about to hear dexcom.com forward slash juice box you may be eligible for a free 10 day trial of the Dexcom G six. Honestly I don't feel like I have to say this but with the Dexcom G six up to 10 people can follow you or your loved ones blood sugars in real time on their phone. Right now. My daughter has been at college for a week. Let me just pick up my phone, open it up. And I can see that Arden's blood sugar is currently 95. And very stable. You can do that as well. With the Dexcom, G six, up to 10 people can follow like a school nurse, your dad, a loved one, your wife, anyone that you want. Dexcom shows you the speed and direction of your blood sugar. And it allows you to set up alerts and alarms at the thresholds that you want. I sincerely hope you check it out. In the story you're about to hear Arden was wearing the do it yourself loop algorithm. But it wasn't enough to overcome the variables that led to the story you're about to hear. And to be completely Blunt, The Dexcom G six and those alerts and alarms saved her ass. I really hope you check it out. And while you're at it, please make sure you're carrying glucagon. Alright, ready? Everybody get ready. It's a scary story. But it all ends well, obviously. So don't worry. Let's get back to Arden.
Arden Benner 16:19
Do I tell the story? Yeah. Okay, wait, well, I'm not understanding. So I'm, at the end of May. I had my prom my senior prom. I looked great. Beside the point you did. Fantastic. So once a prom and then as I went to prom, my parents went to my brother's college graduation. So they were not home that night. So knowing that this was going to happen, my mom made sure that three of my friends leftover that night in case you know, anything happened and just because my prom, it goes in the order of red carpet at the high school, then you go to the actual prom, and then you go to like an amusement sort of park until around four o'clock in the morning. You don't really get 430 in the morning, if you don't really get back to the school to like 530 in the morning. And then you don't get home till like six. Yeah. So we were basically gone. I was basically moving from like, 10am that day till 6am Like, almost 24 hours straight. So I go to the prom, and I come home at like six in the morning, me and my friends. And I'll take all our makeup off. We get pajamas, and we get down to go to bed. And I remember waking up once to drink a juice because my blood sugar was low. And I was like okay, whatever we called you about that. You called me but I was already on top of that. Okay, it caught me. I was like, okay, whatever. I mean, just go back to sleep. My blood sugar was not like, particularly low either. Yeah, your blood sugar was really good the whole day. Yeah, it was really good. And then it wasn't like it was like in like, high 70s Like going down. I think when you called me and I drank a juice. Like I didn't feel dizzy at all. I was like, I drink a whole juice. So it's usually like shoots me up pretty quick. I was like, I'll be fine. Let me just go back to sleep. If anything happens, I'll take care of it. So I got to sleep. And there we are. I didn't wake up again. Because I was seizing. So my dad called me. And I picked up the phone. I mean, let me just tell you, I don't remember ever picking up the phone ever. Like I have no recollection of doing this. But for some reason, my body gave me the ability to pick up the phone. And he talked to me and I don't this is where you have to come in because I don't know what you said to me.
Scott Benner 18:36
So the real like, the one thing that I did, so I stayed up till like two in the morning that night watching you. And you were super stable. And I thought wow, this is going really really well. And Kelly woke me up the first time. Like I guess it was around 630 or so
Arden Benner 18:54
which was around the time I was like taking the first Yeah. And I was like I had I had just fallen asleep. I was barely asleep.
Scott Benner 19:01
So you guys had just gone to sleep. Kelly woke me up and said, hey, you know, Arden's Hello, and I called you and we spoke and you drank the juice, and I looked at your graph. And everything about your graph said that this juice was going to do what it needed to do. And and so people should understand probably the for just because of bad timing. Arden's like she said her prom was the same day as our son's college graduation. So he actually graduated Sunday. Her problem was on Saturday or is it Friday, Saturday?
Arden Benner 19:36
I don't know whatever. The whole point is. I went I was after my red carpet. You guys left
Scott Benner 19:40
we had to leave here. We did the red carpet. Then Kelly and I just boom, we went home, took a shower. We drove off. Spent the night we saw Colin a party went to bed and I stayed up watching your blood sugar like the whole time. absolutely terrific. The one thing I didn't realize is that at like three o'clock in the morning, you ate french toast sticks.
Arden Benner 19:58
So yeah, So the the event the amusement thing we were at, they did this thing so that like every hour, they'd put out a new food and then it hit like three o'clock in the morning. And that was our breakfast, I guess. And I hadn't eaten since I was at the prom at like, nine like 8pm. And I was like, I'm kind of hungry. Like, we're up. Like, I feel like I should do this to stay awake. So I got like a cup. I got literally like three french toast sticks, and like a little bit of syrup. That was like, it wasn't it was barely anything. And I, I also gave myself like no insulin at all. Really? I was like, because I don't you know, I don't want to get love or wha. And which was weird because this happened. Three hours after I ate those.
Scott Benner 20:43
Yeah, that Bolus for those french toast sticks was probably not necessary at
Arden Benner 20:48
all. Which, yeah, but how am I supposed to know that? You
Scott Benner 20:51
know what I mean? I think, listen, I don't think he did anything wrong. I think you told me afterwards, and we'll get to it, that you think that there were just so many different variables that day that we're not. Alright, so. So anyway, so I call RT and she drinks the juice. And then I have to get up and take a shower to go to Cole's graduation. So I'm, you know, go into the bathroom, I do what you do in the bathroom. And then I'm getting ready to get in the shower. Well, I have to say there was a passage of time, a little bit of time, not a lot, right. And I'm standing in front of the mirror. This is embarrassing in the I'm standing in front of the mirror in the hotel, and completely naked, like I'm getting ready to step into the shower. And I think, let me just look at Arden's blood sugar one more time. And I flipped my phone open, and it said low. And the arrow was like diagonal down. So this is when you call me. So I call you again. I pick up the phone, and you're like, hello, and I go art and you're really low drink another juice. And you know what you said?
Arden Benner 21:50
No.
Scott Benner 21:51
Oh my god. Sorry. You said what? And I go drink the juice, there's a juice next you drink it, you're really low. And you go, what? And you have to drink a juice? And then you said I can't. And then you've kept saying that you couldn't you're like I said I didn't drink the juice. I can't. And then I started getting panicky. And I recognized this far away Enos in your voice as you being too low. And so I was like, alright, and drink the juice, drink the juice. And you're like, I can't, I can't. And then
Arden Benner 22:24
and then I said, I'm jumping.
Scott Benner 22:27
Yes. You started saying I'm jumping? Yeah. And I was like, oh, god, she's gonna have a seizure. So I knew you were in the living room, and that your friends were in there as well. So I said, I said, wake up the girls. And you just said I can't. And I was like, just the other names. And I was trying to get you to think I was like, Tell me who's there? Who's there. And I thought if you thought of the name, and you're like, I can't, I'm jumping. I'm jumping. So you were like, going like in and out of consciousness.
Arden Benner 22:56
So first, we should say that his his problem solving skills come in handy. And he screams through the phone. Like the phone is not on speaker. He just screams so loud, that my phone isn't even turned up all the way. And a girl heard it in her sleep. Yeah, and jumped up. So I guess this will take over again. Yeah. So my friend, her name is Nadia, she jumps up. And so the rest of the story is not really from my perspective, it's from what I've been told. So, you know, what, me is a big lie. They lied to me.
Scott Benner 23:32
I can tell you what happened. Well, I got.
Arden Benner 23:34
So, um, I mean, you can jump in. But so what I know is that Nadia came over. And at this point, from my point of view from what I remember is I don't like not remember the situation at all. I just like remember bits and pieces of it. So from my point of view, when they were all my friends had jumped up and they were running around to get stuff. It seemed like like when you watch a movie, and someone's like was was in a surgery, and they wake up and like they're opening their eyes and they show that point of view and everything's flashing it felt like that. So when my eyes were open, my friend would be in the corner of our living room. And then when I blinked she was in front of my face. It was like it was like she moved like the speed of light. And she was like right in front of me. So that was like, odd. And I know I was moving a lot like I know I was jumping like a seat. I mean, the rear will be seizing right I know that was happening to me. But um my friends explained to me that there if they think that I must have like subconsciously heard you say you're having a seizure, and that must have like, stared at me, because I was hyperventilating. And I'm sure like a lot of people probably do that. But they Nadia said that she looked at me in the eyes and it didn't look like oh, she's like just having a seizure it like it almost it was almost like I looked at her like, you need to save my life like I know something's happening. And like I'm having a panic attack about it. Right. So I think we think that's what happened. We think all the hyperventilating was purely just like anxiety. So that's what's happening to me. And with all the jumping around, like, at the end of this, I ended up with like, a rug burn all over me and like scratches all over my wrist. So my friend audit comes over, and one of them, I think, Olivia, my friend, Olivia was there too, once she gave me my first juice box. So I'm told, and she gave me the first juice. And then I remember you saying to test my blood sugar that you needed to have my blood sugar that's important, while Olivia is doing this test my pleasure. And Nadia searching around on this table next to me, and she goes like, it's not here. None of her stuff is here. And I was like, because in the back of your head, it's like, like all my mobility. Like all that's kind of gone. Like I can't move I can't see correctly. Like everything's going in and out my ears and I can't speak but I'm listening to what you guys are saying like, in and out and I was thinking it's prom, I moved all of my equipment into my prom clutch, which they would not have thought to look into. So I was like, oh my god, like how because I was not in a situation where I could be like, Oh, hey, Nadia, why don't you go my prom clutch and we'll test my blood sugar. So I it took everything in me like everything in me. But I worked up the ability to move my left hand. And it was like I fidgeted at the prom clutch. And I kept doing it. And I was just hitting it and hitting it and hitting it, like barely touching it. And she looked at me and I was like, I gave her like this wide look with my eyes. And I'm hitting it and she's like, oh, so she goes, she gets the prom clutch. By the way, the hardest bag to open in my entire life. It's literally like a Rubik's Cube, she finally gets to open. My friends have seen me test my blood sugar before so they do that for me and everything Nadia test. And then while this is happening, you know Olivia is giving me another juice, like all that's going on. And I remember when it was happening, you had told Nadia to go get to get something. I don't know what you told her to get. Because I know that her body was moving to get something right. And I remember her hand like touching mine because I was hitting myself. So she stopped me from hitting myself. I squeezed her because I was like you can't move because it's messing with my head. Because every time you move, it's like freaking me out because you're like jumping around. You're trying to hold her. So I was trying to make sure like someone was next to me the whole time. Right? So I held her there to make sure that she was with me the whole time. Olivia was feeding me juice boxes, which by the way, I could not like I know, Nadia was near me. I have no recollection of Olivia being anywhere near me at all during this whole process. But she was giving me juice boxes. And then my friend sonje was there. She got the bread later. But she she didn't do much. Yeah. Um, so. So this whole thing happened. And I remember like, you know, calming down and everything. And you were still on the phone with us. We tested my blood sugar and a couple more times. But I would say that this lasted like the whole jumping and everything. This lasted like a good half hour. Like it did.
Scott Benner 28:21
Is that how you feels to you? Well,
Arden Benner 28:23
they talk to me too. And they said, because even after, like, I wasn't like, like seizing foresight. I was still like a like, like that sort of thing. You just like weren't there to hear me like you were talking to her, not to me. And every time you asked me something, I was kinda like, Yeah, I'm fine. Like, it was like that, but I was still moving around. So then I would say like, it took like an hour for me to just be like, Oh, okay, like that's over. But it did take a couple of days to feel like, like normal again. Right? But so this whole thing happened. Um, you want to call it graduation that day, right? Really fun day
Scott Benner 29:04
for all of us. Do you want to hear about it from my perspective on the other side of the phone? Yeah. And then I'll tell you what happened after okay. So I screamed in the phone when I realized I wasn't going to be able to help herself or get the girls. I just started screaming. And Nadia said, I'm here. What do I do? And I said, get her to drink a juice. And I said the juice is right there. It's right next to her get her to drink the juice. And she's like, okay, okay. And then another voice came in. And I sent somebody to get the glucagon.
Arden Benner 29:34
Oh, I think Nadia was that's what she was going to get up to get. Yeah. And I grabbed her.
Scott Benner 29:39
Hey, you kept her there. Yeah, because I was like, somebody has to go get the glucagon because if this juice does not work, we have to give her the glucagon. Which by
Arden Benner 29:45
the way, at the end of all this when they got home and I explained the story, they said, Oh, we probably should have gave you the glucagon because the juice was coming out of my mouth. Yeah, so
Scott Benner 29:55
what I didn't know because I was on the other end of the phone just giving directions and not there. To see what was happening is that Arden really wasn't drinking the juice as much as they were squirting it in her mouth. And I guess you absorbed enough of it to kind of bring you back because this whole thing the from art and drink the juice, I can't to Nadia saying I'm here to you not seizing anymore. It probably only took like three minutes. It happened that part of it was really quick.
Arden Benner 30:23
Did not That's not fun quick. I would not. But I think like before I started to speak in sentences again. That was only about a half.
Scott Benner 30:31
Yeah, so no, for sure. So we got your so they gave you juice that I said for you to get. I said Whoever eats something solid like bread, you know, so that your your, your stomach could like not just be full of juice and to hold you up because I wasn't sure what the excuse me. I wasn't sure what the insulin was going to do. So because I had no, because at that moment, still, I didn't know you had insulin. Like this was really crazy that this happened to me because I didn't realize that you'd Bolus anything before that. And I didn't think you would had insulin for like five or six hours.
Arden Benner 31:01
To be fair, it was about like three, almost four hours, which is pretty something like that. That's kind of insane. So
Scott Benner 31:08
well, the peak of the insulin can be three. I mean,
Arden Benner 31:12
it was like it was also those like really crappy, like french toast sticks from like that you haven't that like hit you really hard. Right? So I don't know. It's just odd, right?
Scott Benner 31:22
So there was probably the loot probably gave you Bolus is in there too. Maybe if you tried if it tried, but you didn't get that high afterwards, because I look back later. And you'll never that high after after the, like maybe 130 or 140 After the french toast sticks.
Arden Benner 31:36
I don't know my brain was kind of shut off. Yeah. And so the whole thing was
Scott Benner 31:39
crazy. Because like I said, a 2am When I went to sleep, I was like, I can't believe how well this one today. And it was. So it was, first of all, it was incredibly frightening, because I'm standing there in front of the mirror naked, naked, by the way. And I'm thinking, Okay, I'm three hours away by car. And this is Cole's graduation. And I can't leave here. And I was thinking, I cannot let Arden have a seizure that like couldn't you? No, no, but this is what was going through my head, like Don't let this happen was what was going through my head like, think of something. So all of the skills that I have from talking on this podcast came in really handy because I was able to walk the girls through everything I was able to kind of hear what was happening to you. I could ask them questions about how you were to try to, you know, figure it out. And in no time really. I mean, from the time I picked up the phone and called you until your blood sugar was 60 Again, was less than 10 minutes. Yeah. And so now this is the craziest part. From my perspective. You were okay. I had to get in the shower, or we were going to be late for Kohl's graduation. So I'm like, okay, so I walked. Well, first I looked in the mirror after I knew it was okay. And I thought I have got to lose weight. And I walked into the room. I woke Kelly up I was like Kelly wake up. And she's like, what I'm like, I have to get in the shower. Arden just had a seizure. I stopped it. She's okay. But you need to wake up and start paying attention to her blood sugar because I have to jump in the shower. So mom got up and did that last night. What the hell was I gonna say I was out of my I was so upset. Like, I was incredibly upset when it worked out. I couldn't believe that we stopped it. But it was just I don't know. I want to say it was lucky. But it was crazy. Your blood sugar.
Arden Benner 33:28
The fact that I picked up the phone was lucky, right? The fact that you even looked before you got in the shower was lucky. And the fact that Nadia heard you was like, yeah, it was all right. If they weren't there, I'd be dead.
Scott Benner 33:40
And if I didn't call, then it would have been up to them waking up to this and figuring out what to do. And then you might
Arden Benner 33:46
find out where they're just not
Scott Benner 33:50
as great as they were. And this was really interesting for people three girls that Arden's known forever, like these girls grew up in my house as much as they did in their own house. One of them kind of froze and didn't do anything. Yeah, and one of them was helpful, but not a leader in this situation. Yeah, Nadia took over and like she took care of it. Yeah. And she like, it was amazing. Like so even those Mixa girls you know because people say all the time like oh, I explained it to my neighbor or don't worry they understand but you don't know how people are going to react and
Arden Benner 34:23
through those people probably would have been like, um, if Nadia hadn't said like go do this and go to she
Scott Benner 34:29
got very like she helped direct everybody Yeah.
Arden Benner 34:33
Also you said this previously so you guys obviously like don't know my friends so I'm not gonna like tell you about their lives but out of all of my friends Nadia has probably had like, one of the tougher lives Yeah, so she's been through more traumatic events, which leads to a more like How about everyone just like shut up and let's say
Scott Benner 34:52
yeah, she's dumb. Yeah, she's naughty a seen some shit like this isn't the worst thing that's ever happened to her? I don't think so. She was just like, do this Do this. And I have to say they were amazing. And you know, I would, you know, obviously very grateful but you're not wrong if I don't look at the thing like that was it like I somehow called you 45 seconds before you were gonna have a seizure? Yeah, that was it. And I somehow picked up that phone. Yeah. And you picked up the phone, and then the yelling. I mean, to
Arden Benner 35:21
be fair, like, I wasn't even I don't remember looking at my phone. Like, imagine if I had declined you by accident, right? Like, just all that stuff I
Scott Benner 35:29
would have kept calling back happened. I also would have called the girls after that. Yeah, but it's just that time was important. Because like she said, she had rug burn, it was on her elbows because she was elbowing the chair. She was
Arden Benner 35:40
yeah, we have like this. It's like this chair. It's like a giant chair sort of thing that has like, you can put your feet up or whatever. But it's like, almost like it's like a small sofa, honestly. And the sides of it. I just was hitting so hard that I had. So it was it was very weird, because, you know, like, all my kind of senses kind of leave my body. And then they start coming back to me. And at the end, it was like, almost like because I had lost the feeling in like my hands. Like I didn't really show my hands for like 15 minutes, right? The feeling starts to come back to me. I'm like, what is that? I was like, hurts so bad. It felt like someone was like, pinching me and I turned my elbow lives like oh my god, like you're bleeding. And I was like, from what? And I just had this giant rug burn on my arm. And so they clean out
Scott Benner 36:24
and you also had she had gotten her nails done that had rhinestones put on her finger. Oh, yes.
Arden Benner 36:29
And they were scratched. I was scratched the nails were scratching all over my arms. Yeah, that's the
Scott Benner 36:33
rhinestones are what scratched you when you were moving your hands. Now, why did we tell you all this as hard as leaving for college?
Arden Benner 36:40
I feel like the best part of this is that we got PJs Pancake House after
Scott Benner 36:44
and then the girls couldn't well.
Arden Benner 36:47
Let me finish the story. Yes, since since we're at one you can take it out if you're gonna but um, so yeah, this whole thing happens. We sit on the couch for a minute. And we just kind of, you know, look around. I Nadia and live like sat on the side of me and kind of like squished me in. So I just stayed where I was, um, eating my bread that you told me to eat. And then at one point, you're like, Okay, you can stop eating that it's fine. Solid, just asleep on the ground. My friends asleep on the floor again. And we're like,
Scott Benner 37:20
are you be clear, not drunk. Not
Arden Benner 37:23
high. No, no, no, we don't do any of that just to sleep on the ground because she's tired. So we started taking the bread and throwing it out or we're just trying to have fun. And then, you know, like, this whole thing happens. And you know, it's kind of hard to go back to sleep after that. So we're like, I guess we got an hour asleep today. And we all wake up our hair still like fried because we have all of this like, spraying it from like the day before. Like we didn't obviously didn't shower before we went to bed. We just took our makeup off, went to sleep. And I went, I'm okay. And not it goes off we go get some fresh air. So we went on a drive and we got the girls Starbucks or whatever. I just kind of sat there. And then we brought Saundra cake pop, but keep cake pop. But she ate and then went back to sleep after that. Just so you're all aware just to keep you updated. Um, I you know, like, took a shower and everything. We went to the Lewis house so she could shower Nadia, all them everyone showers. And then we went to PJs Pancake House. We didn't know what else to do. We weren't going to make breakfast. And we all had to eat. So we were like, okay, so we went out, we ate, we came back. And then they stayed with me that day until my parents got home because,
Scott Benner 38:37
you know, obviously, we didn't get home until 7pm. Or like at 12 hours. And Nadia
Arden Benner 38:40
was the last one there. And then her boyfriend came he got us food too, because we weren't gonna make anything.
Scott Benner 38:48
We got home and Arden was shaken. And I mean, she's at that time. Are you 17 Still at that time?
Arden Benner 38:56
Well, yeah. So when we got home, everyone kind of calmed down a little bit and started to like doze off. Like, we put like a movie on and everyone started to doze off. And I was like, I checked my phone like seven times. And I was like, okay, I can go to sleep like I'm fine. I can go to sleep. So I put my head down. But like, as soon as like, I went into like a deep sleep like I was like, and I woke up and I was like, okay, so I can't go to sleep. Um, so then I just sat there because you were nervous. I wouldn't even say like, I was sitting there and I was like, oh my god, like that just happened. I'm so nervous. I think just like, subconscious. I was like, hold like, you cannot go back to sleep. Like, just like, Wait till someone gets home.
Scott Benner 39:34
So I called you from the road. I talked to you the entire ride home. Because I just I felt so bad for not
Arden Benner 39:41
being and we told him the whole story on the way home like from our perspective, because we had settled and we were like, Oh my god. So guess what happened over here?
Scott Benner 39:48
It was crazy. But we got home and then was it it was three nights you couldn't sleep in your bed for three nights. You slept with me and mom for three nights right? Yeah, yeah. Do you know why? Like can you You'd put words to why
Arden Benner 40:02
I just couldn't fall asleep. Okay? I think I just like knew, like, Oh, he's gonna take like, he's there. He'll take care of this for like this night, blah, blah. And then the third night and I was like, Okay, what am I doing? Let me go back to bed.
Scott Benner 40:12
So at what point do you say to me? It was that night we got home. And you said to me kind of out of the blue. You didn't like, you were like, I know what happened. And I'm not worried about happening again. I know how
Arden Benner 40:26
Yeah, so this was like an odd so I feel like you talked to most kids who were my age about to go to college, 15 hours away, and they're like, I literally had a seizure four months ago, this is not going to be okay. Like, blah, blah, blah. I mean, sure, like, still in the back of my head. I'm like, Arden, you had a seizure four months ago when you were asleep. So be careful when you're asleep, like all that stuff. But I was like, I was thinking about it. I was like, none of this was my fault. Like, at all. There was nothing here. That was my problem. So I realize so it was the end of May. But like, somehow the hottest day we've ever had like that that whole year, like genuinely was probably the hottest day we've had. I was up. Let me just preface 10 o'clock is very early for Arden. So I was up pretty early. I got my makeup done. I got my hair done. I was running around doing that I came home. I did not eat anything. I got salad. Olivia I got Yeah, I got dressed. We went to go take photos. And I had a salad at my friend's house. But like barely like it was like one of those days where I was like, oh my god, like we're going to prom. Like I was like, not like not like not worried about eating. But just like I was like, couldn't eat a bunch. I was just like, Okay, let's keep going. Because we had to make it to the red carpet and blah, blah, we're moving around all day. We're moving around, it's hot outside, I'm up late, all this stuff happens. And I was just like, none of that was my fault. Like, I was like, I never say up till six o'clock in the morning. I don't even run like, I've never had this much activity in one day. I was like, and then there's adrenaline on top of that are like, like, you know, I wasn't sitting there like, prom. But you know, probably like, my body's like, okay, like, it's prom. Like, you know, you gotta look good, like all this stuff. So there's like adrenaline with all that, like jumping around all that stuff. So I was like, they're like, if this was just me, and I had had french toast sticks. And then I gave myself this insulin, it would have hit me much harder than I would have been writing about my Bolus. And I would have just went to bed. And I was like, none of this was my fault at all.
Scott Benner 42:20
The way I see it in retrospect, is that the entire day, you were probably excited. Or you had adrenaline going. Yeah. So we were looking at these amazing blood sugars for 10 or 12 hours, like 80 to like 110 at that best. And they were just they looked magical. And I thought wow, I can't believe how well you know, this is working. And you had dinner and you Bolus well, you went up a little bit 150 But you came back and you were level again.
Arden Benner 42:48
Yeah, I did everything. Even like I'm at the prom. The food selection was not like, you know, I wasn't like, you know, a resort or anything. Right? Okay, that's okay. I'm sorry, the screensaver happened again. But um, it was just like, you know, it was like a little buffet sort of thing. But it was almost like, there's so many kids in my grade that it was like, get to the buffet so you can eat. And at that point, like I wasn't even that hungry. I didn't even eat that much. I barely get I barely I had three Shirley Temples and like barely give myself insulin.
Scott Benner 43:18
Yeah. Let's see, this is the part where if I would have known that stuff, yeah, we would have set like some overrides.
Arden Benner 43:27
And I didn't know that yet. Right. I wasn't taught. Let me just let me tell you guys, this too, is the whole override thing was like making sense in my brain, like two months. So this wasn't
Scott Benner 43:41
what I'm saying. We would have just dialed back your insulin for the whole day. Yeah,
Arden Benner 43:45
I knew my dog basil. And I know what that meant. I was like, Ooh, basil.
Scott Benner 43:50
But my point is, is that the one disconnect of me not being bear is that I couldn't see how active you were. And I didn't know about the Shirley Temples. Like if you would have told, like if we would have spoken you said look, I've drank three Shirley Temples today and not really Bolus for anything. I would have said, Okay, let's do this. And, and so so
Arden Benner 44:10
I had I felt that way too. Yeah. I thought that one was gonna myself insulin for the French toast. And then I was like, Yeah, but you were like at prom. And now it's like four o'clock in the morning. Like, my like all that adrenaline was like, the only adrenaline that I had was the adrenaline keeping me awake. It wasn't like excitement. It was like I wanted to I wanted to leave at one in the morning. I was like, after that prom. I was like, I could go home and I'd be fine with this. But I did start to get low. Our bus driver, terrible bus driver, like brought us to the wrong place. We were on the bus for like an hour longer than we were supposed to be. I started to get low there too. And I was like, oh, like that's time was that. Like one maybe? And then it was like four when I ate this stuff. And I was like, three I mean, and it like it just hit me. I was like, Okay, this is over. I want to go home. I'm not excited about this anymore. or, like all this stuff. I was like, I'm not moving around. I literally sat there for like the last two hours just in a chair, like nodding off just like putting my head down. Yeah, so I had felt like the heat was gone. I didn't think like any of that was gonna affect me. Yeah. Yeah.
Scott Benner 45:13
So I think the adrenaline, the activity, the lack of sleep is a big thing.
Arden Benner 45:18
Not even just for this, but like for my brain. Yeah, I probably did not sleep for 42 hours straight after because I had trouble sleeping. That whole day, too. So if you think about it, I woke up at I had to be somewhere at 10 I woke up at nine. Then I
Scott Benner 45:36
sorry, get back to the mic. Sorry. That's
Arden Benner 45:39
stretching. Um, so I had to be somewhere at 10 woke up at nine. I got home at six got an hour asleep. woke up at seven again. And then that whole day, too. Yeah, I was awake, because I was waiting for you to get home. So I had like, no sleep.
Scott Benner 45:59
Well, anyway, there were a lot of variables. And you did a really great job with most of it, and you just didn't have it. I don't think you saw the big picture big enough. Not that it's your fault. But it just you know what I mean? Like, there were so many things happening. There was a lot of math and I don't think you got it all. Yeah, it all came together. But a couple of days later. You were eating something. And you made this like aggressive Bolus for it. And I said, like I said, that's a good Bolus. And you're like, I'm not scared of this. Like you said something like that. A couple of
Arden Benner 46:32
probably made a joke like when you think I'm scared about this now or like,
Scott Benner 46:36
but you're you don't feel scared? No. Okay. And so, what did you learn from it for school for college?
Arden Benner 46:44
That's um, I don't know just like that about the heat and all that and the adrenaline I'm moving around and I know that usually the first couple days of school my adrenaline's higher I already know that. I already know about the heat in Georgia and know about the walking and what will walk so I'm gonna Bolus later like the first couple of days on there for sure
Scott Benner 47:07
we want to be be active insulin while you're sleeping, active insulin wire. Exercising. Those are two things you want to avoid. Yeah, so we're going to try.
Arden Benner 47:19
What that means is to decrease your Basal or something, but it means don't eat too late at night. All right. I've been told that enough. But I'd like my mom
Scott Benner 47:30
to tell you. So.
Arden Benner 47:33
That's good. Oh, milk smart ice cream. Everyone. You should go by that.
Scott Benner 47:36
We told you to eat the oat milk ice cream not doing this help. Give her her proper do it? No. Really?
Arden Benner 47:43
No, because you try to like act like you'd like save my world. And I'm with the
Scott Benner 47:47
oat milk ice cream. Yeah. It was Jenny. Jenny told you. Yeah, fantastic.
Arden Benner 47:51
I'm not a part of this. I'm not affiliated.
Scott Benner 47:57
What movie is that? So incredible. Incredible. Yeah, that's great. Okay, so it really is a funny part of the movie. It's when Mr. Incredible and with the little boy's name. I'm incredibly incredibly and he's trying to like glom on to this thing. And
Arden Benner 48:13
I'm just having like, all these TV show references pop up. Now. Now I'm thinking like, Oh, you're Buffy.
Unknown Speaker 48:18
I have a Buffy Did you new girl?
Arden Benner 48:21
I was because we were talking about that in the same day.
Scott Benner 48:24
Anyway, incredibly, is trying to infer himself on Mr. Incredible and he goes, we're not affiliated. It's hilarious. I don't know why. It's just very funny. Okay, so we're going to do this together, right? Like, is that how you see College? This no different than when you're at home? We're just not going to be in the same room. As far as diabetes. Hey, Jess.
Arden Benner 48:41
And I think that there's things that you do on your end that I'm not aware of.
Scott Benner 48:46
Like, sometimes I make changes to your insulin remotely. Yeah, I've done that before.
Unknown Speaker 48:50
Yeah, yeah. Well, I
Arden Benner 48:51
feel like that's something you should probably tell me now.
Scott Benner 48:53
Yeah. Well, I think that's what I wanted to tell you is that I think that using your story about the seizure, and seeing the gaps where I didn't know things like that you ate or I didn't know that you had it, you
Arden Benner 49:06
know, like, I think, sorry to cut you off. But I think part of my problem as a person, this is an overall thing is I hate when I'm being told what to do. For example, there is a water next to me that has a powder in it. That is supposed to help my ovaries.
Scott Benner 49:22
Well, your hormones. We call it your ovary what?
Arden Benner 49:27
Oh, yeah, my ovarian water is what we call it my uterus water. But what ever, it's supposed to stop me from bleeding all over the place. Okay. When you tell me to miss this water, or to take my pills, my brain automatically says, Yes, I'll do it in 30 minutes, because I just get so pissed off. But my thing is, when it's not related to all the medical stuff, but and I'm just it's just part of my day, and it's part of my routine and I need to do it. That's fine. So maybe we could do that. A daily check ins on what we're eating for lunch. But it doesn't need to be because of the blood sugar. It could just be because I'm showing you what I need to eat. That would make it better. Like, hey, look, this is what I'm eating for lunch, not like, hey, looked at how many carbs is this? I don't want to do that. That's not that just infuriates me.
Scott Benner 50:17
Well, would it be okay, if I texted you? And asked questions? Just like, are you particularly Are you are you being like, if I looked and I saw you were like, like, lower today? If I said, Are you walking a lot? Would you say yes? Or would you be like, I'm not answering this question. But do you have to bleep that? I mean, I will have to bleep Oh, that's so boring. It's no, it's kind of fun. So you could still tell us I had a couple of times, we have to bleep it. I mean, just gonna make more work for me. Please do it. Go ahead.
Arden Benner 50:50
I know, I feel like I didn't really say it there.
Scott Benner 50:53
Well, you can mix it in like, oh, so so that's what I was just thinking like, let's take the lessons of that night from your prom. And remember, what I didn't know that would have been valuable for me to know. And what you didn't consider
Arden Benner 51:06
my sag room serum.
Scott Benner 51:08
I definitely don't know what that is.
Arden Benner 51:09
plus b squared equals c squared dad's easy.
Scott Benner 51:14
And you can take into account what you didn't give the proper weight to. And between those two things. Oh, we're gonna be okay. Well,
Arden Benner 51:21
this seems like a
Unknown Speaker 51:21
problem. No.
Arden Benner 51:23
I think you're, this is a good therapy session, your problems are probably just not knowing what to eat. And mine are just not knowing how insulin.
Scott Benner 51:34
If I knew that you Bolus at 3am. I know you said that would have changed. I know. And if I would have known you were taking in so many uncovered carbs during the day. I'm being lectured. No, no, then that would have been something I would have been valuable for me to know. Okay. And you need to remember about activity heat, lack of sleep adrenaline,
Arden Benner 51:53
all that stuff. Yeah, that was really a really good lesson for me.
Scott Benner 51:56
It was a really good lesson. I bet you don't forget it.
Arden Benner 51:59
No, I thought was a great problem. Everyone, by the way, prom was horrible. Let me just put it in there. Literally, like the most boring thing I've ever went through my, my eighth grade formal was. I was at prom. And I was like, what, what are we doing? Like, let's go home. Like, I looked good. And I got my photos. And I'm, I'm, I'm done. Like, let's go home.
Scott Benner 52:20
Yeah, it was a weird thing. They kept them out. Like literally, it was
Arden Benner 52:24
obviously for like drinking and drugs. And they didn't want us doing that. Which by the way, I've never done my life. And I would have been happy to go home and go to bed or watch something on TV. But they left which honestly felt like a safety like thing that they should not have kept us up that late. And it wasn't even like, like some kids fell asleep there. But it was almost like you fell asleep and they were like, hey, like get up like your prom. Like, no, like, let us go to bed. It's five o'clock in the morning. Alright,
Scott Benner 52:49
so it's getting late here. I want to go over two things before we go. First thing is, so everybody listening knows that you've had different troubles like with your stomach getting your periods been amassed, and everything like that. And so over the years, we've tried so many things, which I'll encapsulate in some episodes somewhere. But we really feel like we've come to some sort of a, like a breakthrough and a
Arden Benner 53:11
couple of things. I don't feel like this is a breakthrough. But I mean, you don't think of it that way.
Scott Benner 53:16
Well, that is it overall. Is that the ovary water? I didn't make it. How would I know that? So which so you're bleeding was very irregular, erratic. Right. And much longer than it should have been. So we tried birth control pills for like a year and a half. Probably
Arden Benner 53:34
yeah. Which by the way, I've been off of those for I don't even know how many months and much better yet, like thinner to get you didn't gain a lot of weight. You did not like it at
Scott Benner 53:43
all. And it did something so the note the once a month those bleed, stopped with the birth control pills. And the 11 day long periods stopped with the birth control pills.
Unknown Speaker 53:56
Right. Yeah, but definitely wasn't pregnant.
Scott Benner 53:59
And but, but it didn't like it wasn't like a cure all. It had other problems. One of them was your insulin needs went up. Yeah, sure. Yeah. Like pretty significant. Not home. Probably. Not on prom night. But but you're but yes, it did. Because on prom night, your insulin was like 1.2 an hour. And today, do you know what it is today? No, I have no idea. It's like point nine. Wow, it's a significant decrease. Your insulin sensitivity on prom night was probably like 41. And today, it was like 47. So your insulin needs are going the other way. And I think it's because you're drinking this stuff. And it's balancing your hormones out. Yes. So we have to drink Sherlock. Well, I feel like that a little bit because this was not easy. This was not easy to figure out. So you have to drink this every day. Like I had a heaping scoop of it once a day mixed in water doesn't taste like anything, right? It's not a big deal. The other stuff we figured out because you weren't like yeah The schedule. Arden was like really constipated for me. So, I mean, I'll have to bleep that out.
Unknown Speaker 55:06
Are you serious? Yeah, I think so.
Arden Benner 55:08
Oh, this Todd.
Scott Benner 55:11
But, but, you know, of all the different things that we tried, we finally got a, like a biopsy did an endoscopy, right? And they looked in there, they saw your stomach was inflamed and that you weren't like food, just get your food. Digestion was slow. And so all we ended up doing was adding a digestive enzyme to meals. And it has made like a really big difference, right? Are you yawning? It is like, yeah, it's
Arden Benner 55:42
- And we have to leave it five but yes, yeah, yeah. Better. Oh, sorry.
Scott Benner 55:47
We added a digest loving can say I digested enzyme to two meals. We added magnesium. Once a day and a probiotic once a day. Yes. And it's made a big difference, but not just for you and your digestion. But it's made a big difference about your boluses too. Yeah, yes. So you've been needing less insulin. And you've have not been having spikes through meals that we normally see spikes through.
Arden Benner 56:17
That would be correct. Yeah. It's pretty good answer. Amazing. Write to me. We did not add those things. We added that, That? That? pill bottle, that pill bottle, that one and that one right there.
Scott Benner 56:29
There. It's fixing a lot of problems. So I just between you and I, I don't want to bug you while you're in college. That's not true. I really don't I don't want to bug you. I just need you to do these things. Okay. I agree. That's it. Okay. So let me just go over this with you very quickly. And then I'm gonna let you go. Your Basil is super important. If your basil is wrong, everything's gonna be messed up. Just try to listen for a second. I'm definitely with my eyes closed, right? You have to Pre-Bolus your meals. Right? You have to do a reasonable carb count on things. You can't just whack ass guess everything. Okay, I'm gonna have to try to get some carb counts for
Unknown Speaker 57:08
something. I'm,
Arden Benner 57:10
I'm a great guesser. Okay, try not
Scott Benner 57:12
to have active insulin while you're while you're exercising or walking to class. Right? You don't want to have a bunch of don't walk. Okay, active insulin. We're going to try not to eat late at night. We're going to try not to make big boluses late in the evening. I think that's going to be a big help.
Arden Benner 57:30
So don't eat and don't walk.
Scott Benner 57:33
Don't walk, don't eat. Don't breathe asleep standing. Now, but that stuff makes sense. Right?
Arden Benner 57:43
Good answer. Yeah,
Scott Benner 57:44
it does make sense. Okay. So those are the things that because you have to understand that when I'm not there to see what you're doing. I can't tell you hey, are and try this or try that. Like, you know, it's so it's going to be a lot of us. Hopefully talking Do you think we'll talk by phone? FaceTime?
Arden Benner 58:01
This feels personal.
Unknown Speaker 58:02
How do you how do you think we'll do it?
Arden Benner 58:05
Maybe WhatsApp, since I'll be
Scott Benner 58:07
using it. Oh, Cassandra is going to London. Yeah.
Arden Benner 58:12
Just do a bit WhatsApp. So fun.
Scott Benner 58:16
So we're just gonna have to stay connected a little bit till we get everything settled. And then I think the biggest thing is that you can't I don't want you to living scared. But you can't also think that it's just magically going to be okay. I
Arden Benner 58:30
mean, there's other things to worry about, like a rape. You're sure you could
Scott Benner 58:33
be sexually assaulted? Yeah, sure. Are you taking your taser?
Arden Benner 58:38
Oh my God, I didn't pack my taser. Should you think I should?
Scott Benner 58:41
I mean, your cousin gave you a taser for your birthday. I don't know why you wouldn't take it away. Yeah, I'm not sure if you're allowed to have a taser by the way. Why not? It seems dangerous.
Arden Benner 58:53
Yeah, but they can't stop me.
Scott Benner 58:56
You don't think the school can't say you're not allowed to have a taser? I don't
Arden Benner 58:59
if you're walking in a city alone that you have no right over what you can have. Yeah, I guess so. If you can have pepper spray. Right. Can you have a taser?
Scott Benner 59:07
I don't know. Let's find out. Also the school was really great about setting up accommodations
Unknown Speaker 59:12
like letting you have another these people
Arden Benner 59:13
know where I'm going. Don't tell them I don't think they exactly Chicago. You can all find me in Chicago for
Scott Benner 59:23
me the Windy City. But they were nice about allowing you to have a small insulin refrigerator in your room. And they're gonna let you put supplies because your your classes are going to be kind of spread out across the city. Yeah, yeah. Yeah. So they're gonna let you put supplies in different places.
Arden Benner 59:39
We have more time i i talked about that.
Scott Benner 59:41
Yeah, well, we will how far my classes you're gonna come on the podcast while you're at school to be a good time for us to chat. I might be busy that day. No, you all go into school to be a neuroscientist. Um, no, I hate that. You can't curse. You can't curse. It just has to be bleeped out. No, but it wasn't really a curse. It was really it was harsh. Well, alright, so do you have anything you want to say? Do you know that you have the second most popular episode ever on the box? I should? Yeah. Yeah. You know, it'd be you
Arden Benner 1:00:16
can I guess? Sure. Isn't one of the people who's like founded this stuff or something.
Scott Benner 1:00:22
It was the announcement of Omni pod five. The CEO came on. Yeah, the CEO. Yes. Yeah. Yeah, that's what I just said that one has a couple 1000 more downloads and a couple of very, they're neck and neck. It's probably like their wife or something. Do you think people are gonna be like, like, so? The reason I think it's valuable to tell your story about prom night, too, is that after the shock was over, and after we examined what was done, and what we do. We didn't go backwards. And I know and I've interviewed a lot of people who have lived for years with very high a onesies because they've had a low blood sugar. They were scared and they stopped taking good care of themselves because of that. But that I was very proud of you that that didn't happen to you. So being serious. Yes, it was. Don't Don't be stupid.
Arden Benner 1:01:10
I'm not massive, but I'm being this my serious voice. No, I was
Scott Benner 1:01:13
I was really proud of you the way you bounce back from it. It was a it was a lot to handle. And, and you did a really admirable job of, of thinking it through. And then just moving on. I thought that was really great. Yes, seriously. So now you've had what? I heard what? You've had three seizures. I don't remember what you were a little baby. You were two when you had your first one.
Arden Benner 1:01:37
You know whose fault that was? That was your fault. Yeah, yeah. You've done about here. I get you guys listen to this guy.
Scott Benner 1:01:43
Yeah, Arden tried to eat Chinese food when she was two. We did not know what she was doing. That was not great. We fix that one with glucose gel on your cheek. Which by the way is what happened because those girls were squirting juice in your mouth. It was probably just being read. Do you think you were swallowing it even?
Arden Benner 1:01:57
That I have
Scott Benner 1:02:00
no other question then the second time it happened? We were in Disney when you were like four maybe I hate
Arden Benner 1:02:05
this new world. I know you don't like if any of you like this road. Guess what? I don't.
Scott Benner 1:02:10
Okay, you everybody doesn't have to like the same thing. But what you got a popsicle after a long day of activity. And I didn't know not to Bolus? Yeah, I didn't know. And we fix that with glucose shell too. I've told that story on the podcast before that was funny, because he ends up with glucose Chelek all over the ceiling of the hotel. The hotel room? Yeah. Oh, I
Unknown Speaker 1:02:29
don't know. That's, that's great. I'll tell you about.
Arden Benner 1:02:31
We all know more about me than I do. That's probably true.
Scott Benner 1:02:33
Yeah, this one was genuinely scary. Because we weren't around.
Arden Benner 1:02:38
Yeah, and because I'm gonna like an adult now. So I'm like, Oh, my God. I'm gonna die. Okay.
Scott Benner 1:02:43
You have more context. Yeah. What happened to Yeah. Well, I hope you have a great time at college. Thanks. I'll talk to boys. They're talking to boys. Don't do drugs. Don't drink
Arden Benner 1:02:59
never done drugs never drank. I drank once actually, some wine mom put on the turkey. That was it.
Scott Benner 1:03:05
So do you think much will change about who you are in college?
Arden Benner 1:03:10
No, not at all. Honestly, really? Not at all.
Scott Benner 1:03:14
Do you think Cole thinks you're gonna change? I think whole wishes I'm gonna change. Today, I felt like he was saying like, you'll see what happened. I felt like today it was a little personal. No, I felt like he was saying you'll see what happens when you go. Like he's,
Arden Benner 1:03:27
I mean, maturity, probably like Libya. But I don't think like, I'm going to change, which I'm sure a lot of people like a lot of people who are like, Oh my god, I'm never gonna do that. And blah, blah, blah. And then they end up you know, like, heroin user, but I know it was a leap. But yeah, but um, I don't I just genuinely don't give it. You took? I don't just I just don't care about any of that stuff. At all.
Scott Benner 1:03:51
I think you're gonna be fine. Yeah, and we're gonna take care of you. And yeah, just like candles, so they won't let you like candles. You'll be like, gonna do just not like candles. I can't bring the dogs either. Oh, my God. Are you gonna miss the dogs?
Unknown Speaker 1:04:06
Oh my god. Yeah. It's upsetting. Yeah,
Arden Benner 1:04:09
you guys will be fine. It's It's upsetting that they don't know why I'm gone. Like, I can't look at the dog and be like, I have to go to college. So I won't be here. It just feels like I've lost them.
Scott Benner 1:04:20
Yeah, you've abandoned them.
Arden Benner 1:04:21
Yeah. What do I say?
Scott Benner 1:04:23
There's nothing to say. Oh, they don't understand and they give you the puffy eyes when you leave. I can't do they're only puppy eyes because they're puppies. Okay. Well, I appreciate you doing this very much. Yeah, I
Arden Benner 1:04:33
have a lot of oil on my hair right now.
Scott Benner 1:04:34
Yeah, we're gonna go we're gonna go rinse your hair. Yeah. All right. And then we'll go out to take you to school. All right. Yeah. Okay.
Arden Benner 1:04:43
Thank you. If someone has listened to this all the way to the end. I'm sure they have. I feel so sorry. Why to any of the story? No one. Well, listen, I'm fantastic to listen to. But I'm saying like I'm so sorry.
Unknown Speaker 1:04:58
I don't understand why I'm Never know
Scott Benner 1:05:03
why this podcast is incredibly
Arden Benner 1:05:05
say it wasn't okay. I said personally, you know how we all said Not everyone has to like Disneyland. Not everyone's gonna like the podcast. Do you know
Scott Benner 1:05:12
I'm gonna send you episodes of the podcast while you're in college? You
Arden Benner 1:05:15
know, I'm gonna be busy. But particularly the exact time you send the episode, I'll probably get busy right then
Scott Benner 1:05:22
Well, let me say this before you go, Oh my God, you have been taking care of yourself almost exclusively for like a year now. And we've been doing that on purpose because you're getting ready to go away to college. And you've done an amazing job, like really, really good. You've kept your a one see where it's been. You know what I've done. You've been more in the low sixes over the last year than you had in the past. But you were fighting against the birth control pills, the hormone imbalance stuff, as a lot of a lot of stuff. I actually think you're gonna find it easier as we're moving forward to manage the insulin because you're doing those other things, but you did a really great job. So I'm proud of you. And I think you're going to be fine. I think if I dropped dead right now, you'd be okay. I think you'd have
Arden Benner 1:06:04
to look up dropping dead like seven times. Today.
Scott Benner 1:06:08
It's a dropping dead episode. But
Arden Benner 1:06:10
like I should you name it. Drop dead. Gorgeous.
Scott Benner 1:06:14
I think your name is going to be oh, what? What if we call it like Arden's leaving for college?
Arden Benner 1:06:18
No, that's so boring. Okay. All right. It goes to Chicago. Like the whole time we're like, what the heat down like where I'm going and all the South
Unknown Speaker 1:06:27
Georgia. Dad think we did. Crazy pupil.
Scott Benner 1:06:31
There's definitely a few crazy people listening, but but not all, most of them are really nice. Like, more than what I know. Most of the people listen to podcasts are lovely. Okay, yeah. Okay. All right. Do you have any messages of hope? Hope? First thing I imagined you didn't have?
Arden Benner 1:06:50
Um, what are my last words gonna be? You know, I already said in case there's like a fatal car accident or something like that. What do you mean? No, my last words.
Scott Benner 1:07:03
Do you know? Do you think people would know that you and I were talking the other week? And we were like, we said that? Isn't it crazy that somebody's going to leave for college and die on the way?
Arden Benner 1:07:13
Oh my god. Yeah. They live their whole life to go to college. And then they're just gonna drive there and they're gonna die. Somebody Won't somebody want me? Yeah. Or like there'll be paralyzed or just something's going to happen to someone who's going to school right now. That could be off just so you guys know. I'm not saying that. You should do this. But fair warning. You should not do this wink wink. But if you get hit by a bus that is under your colleges name, free tuition.
Scott Benner 1:07:42
You know that?
Unknown Speaker 1:07:43
I hear that on Tiktok? Um, well, yeah.
Arden Benner 1:07:48
I buzz and free tuition. And then someone said this is at every college if you get hit by one of their vehicles that the school owns you get a free tuition.
Scott Benner 1:07:58
I don't think that's a rule. I just think that's something that school does trying to get us on Tik Tok, or did I In fairness, I didn't learn about in tech. That's what I'm saying. Alright,
Arden Benner 1:08:09
1220 a, I
Unknown Speaker 1:08:10
will say goodbye.
Arden Benner 1:08:12
No, I don't do goodbyes. How about your farewells?
Scott Benner 1:08:15
Do you think you'll cry at all in the next couple of days? So we're going with driving tomorrow? And we're spending a couple of days mom and I and they moved in the neck. We're gonna move you and you're gonna be in your room, but we're gonna stay behind. Do you think I'll cry? Okay, here's what I let's do it like this. Who's gonna cry first? Yeah, that's fair. Because you've already cried, cried yesterday, in the two days ago. And we're in the grocery store. shot that I was kidding about. I cried the difference. I saw you crying my room yesterday. I cried in your room yesterday. Yeah. When we were packing, and you're sitting on my bed. I said then yeah, yeah. I'm saying let's try to get away with that. So you think I'm gonna cry first there. And then who is least likely to cry of the four of us? Coal? Probably right. I did not cry when coal left. Right. I was a comic relief when coal left. Do you wish it was a terrible story, by the way? Why? Because we're driving home. That hair is too low. Well, you can come back on until that sorry. So we're driving.
Arden Benner 1:09:18
And they're trying. And I went well, at least I'm here trying to be like funny in a way but also like, Hey, guys, like it'll be fine. And the both of them just like, look back at me. Like so. Like, you know what? Shut up. It's not Oh, no, you know, that's how it felt. And they just looked for it again and kept crying. I was like, Okay, that
Scott Benner 1:09:38
is not how we looked at you. Anyways, cold calls the least likely to cry and I'll be you mom. Will you cry? So here's my thing.
Arden Benner 1:09:47
I'm not the type of person to be like, Oh my god, like my family's gone and bought cars. Like, in my mind, I'll be home in like three months, right? Yeah, everything will be fine. But I think the only thing that makes me upset is the Dogs honestly, like, I'm being genuinely serious.
Scott Benner 1:10:03
Let's just Let's just make sure people understand. Have you ever cried in a movie? Twice? And what was it?
Arden Benner 1:10:12
Well, one of them was the Avengers. Endgame right. When Morgan asked for the cheeseburger, I cried. It wasn't even when Tony died. It was when she asked for the cheeseburger. That mean I don't even know I that made me cry. It was just very emotional to me. And I cried. I cried watching Hotel for Dogs. Why? I don't know. But you came downstairs and I was like, why am I wet? And I was like, oh my god, I'm crying. I was like, nine, two. But it wasn't even about the dogs. It was when they got because they were foster children and they get separated.
Scott Benner 1:10:48
Right when the foster kids got separated. That's when I cried. Really? Yeah, that's nice.
Arden Benner 1:10:52
I didn't cry about the dogs, which is weird.
Scott Benner 1:10:54
You don't think you're gonna cry once while we're down there.
Arden Benner 1:10:57
But like a heart like when you guys are there? Yeah. No, I don't think that's me. I don't have a lot like me. I think like maybe once you leave, and I'm like, I don't think I'll like hardcore cry. Because for me to hardcore cry, you gotta like really get the last time you cried like that. I don't know if I should tell the public about our family issues.
Scott Benner 1:11:20
But when we had a big family meeting, you cried.
Arden Benner 1:11:23
Yeah, that was tough. Yeah, let's just put, it was tough for all of us. Um, you know, it was tough. But for all of us, by the way, it was a it was a knife to the heart that meeting for each of us in our own separate ways. But, um, that was last night. Like, genuinely cried. Yeah. But like, I'm sure like, a tear will come down my I'd be like, oh, like, I missed the dogs and, oh, they're gone. But they'll probably be like, Oh, no, I'm gonna do something like a friend.
Scott Benner 1:11:54
Okay, well, it's good. I think you're gonna do great.
Arden Benner 1:11:57
I've been told that a lot. But I feel like you have to say that. So
Scott Benner 1:12:00
you think that I have to say you're gonna do but like everyone I talked to you have to be like, You're gonna do great. If I didn't think you weren't gonna do right. You don't think I would say something?
Arden Benner 1:12:09
No, I do think you would say something. I'm not talking about you.
Scott Benner 1:12:12
Do you think I've treated you any differently? Since the seizure? About going away to college? Oh,
Arden Benner 1:12:21
probably a little, like a little more. Like, I don't think you've treated me differently. But I think you've been more like, a little more pushy. Like, aren't you gotta know this, man. What? And then I'm like, yeah.
Scott Benner 1:12:35
It's weird, because it wasn't because you didn't know any. I mean, it was just such an odd situation. I three hours before it happened. I was looking at your graph, and I would have never imagined anything was gonna happen. Yeah, so it was really crazy. And having and having said that, I mean, you're 18 and the last time your blood sugar got that low. You were four. So yeah, I am 18. Yeah, yeah, you just got to wake up when you're so now it is technically legal day Tom Holland. If you day Tom, do you want to put it out there in case you in case Tom Holland hears? I think it's like your brother's a diabetic or happen to be listening. Yeah, something like that. What What was I just gonna say? I forgot what I was gonna say. It's easier to by the way interview people when you're in the same room. This is way easier than the way I do it usually. You're welcome. Thank you
Arden Benner 1:13:30
for living here. And taking all your money.
Scott Benner 1:13:33
Yeah, and everything else. Our cars are completely full of stuff. Matos Arden took enough clothes to like clothe seven girls while she's there. So yeah, I can't wait for you to come home be like, I'm not bringing this many clothes next time.
Arden Benner 1:13:48
I probably will. But you know, for now. Yeah, you got Oh, I got it all
Scott Benner 1:13:53
you got to figure it out. All right. Well, I love you. And I'm gonna have I'm gonna miss you a lot.
Arden Benner 1:13:58
That wasn't really sentimental. Because when you said that I was burping.
Scott Benner 1:14:02
Can I tell you what I really care about?
Arden Benner 1:14:05
Money? No.
Scott Benner 1:14:07
I mean, I mean about you, going away. I just want you to be as unencumbered as possible by diabetes. That's a big word is a big word. I just don't want you to have to think about it very often. And I want you to be safe. And other than that, I kind of don't care. I think I don't care what else happens. I want you to take the army to drink that water.
Arden Benner 1:14:28
It's gone, by the way, but I felt like sipping it in this microphone was probably not the best
Scott Benner 1:14:33
of what you did drink the water. Take the pills, take care of your health. Watch your blood sugar, learn about your blood. I would it would be great. If you came home three months from now and you're like, you know, I recognize that this food needed less insulin than that food.
Arden Benner 1:14:50
I'll probably I do know that about other things too.
Scott Benner 1:14:54
The funny thing about diabetes with you is you know a lot of it you can't articulate any of it. cuz I don't care. No, you do? No, like,
Arden Benner 1:15:02
I care to stay alive. Yeah, I don't care about this. No, no, I know. But like, if someone if, if I was at one of these events you go to, to talk to people. And someone came up to me and started talking to me about diabetes, I'd looked on their face and be like, I'm so sorry, I don't want to talk about this, like, you need to get away. Well, you wouldn't do that. No, I wouldn't put it that way. But But I would be like, I just I'm not gonna have a conversation about what
Scott Benner 1:15:26
I'm trying to say is that I know what you know, and I watch how you handle things. And your understanding of it far exceeds your ability to talk about it.
Arden Benner 1:15:37
I just don't like talking about this. I know, it's not like it makes me uncomfortable. I'm not even like that. I'm bored by it. But like, I feel like a lot of people get this disease and they get wrapped into it. And I think it's good that people listen to this and join communities to you know, figure it out. But on my end, like I haven't figured out and I'm not like a like, if I don't have to talk to people. I will do that. You know what I mean?
Scott Benner 1:16:03
So I understand everything you're saying, but you're missing my point.
Arden Benner 1:16:07
I'm not missing your point. I know what you're saying. And I don't know how to articulate it. Apparently,
Scott Benner 1:16:11
you're not good at explaining what you know about diabetes. But you are good explaining what you know about other things. Like what? I don't know, you're like, we have many lovely conversations about things where I don't feel like you struggle to put into words what you're trying to say. But you know how to do diabetes, you don't know how to talk about it. Which is fine. I don't think that matters.
Arden Benner 1:16:34
I think it's because I don't enjoy talking about this. No, no,
Scott Benner 1:16:37
I see that. Yeah, I'm very good at talking about oh, who are you? I am thanks for telling. But I don't even know why. Because it's a lot of technical stuff. You love talking here, but I could talk about anything. Yeah, that's fine. Just said, but this shouldn't be a thing. I'm good at. Like, based on my personality.
Arden Benner 1:16:56
All this feels like it's about you. Now if this was my episode, okay. Just make your own episode, if you want to talk about your dad. Okay, I'll do that.
Scott Benner 1:17:04
I'll interview you. Well, you Yeah. Okay. We'll do that next time. But you have to make the questions. That's a moderator, not an interviewer, then I'll moderate. So you want me to ask myself questions that you'll read to me. They don't need to know that. Don't think they need you in that scenario. What if we let people ask you questions? No, you don't want to do a q&a? No. Do you think you would come on the podcast while you're away at school? No. Well, thanks.
Arden Benner 1:17:35
That was my polite voice.
Scott Benner 1:17:36
All right. Say goodbye to people. No. Thank you. All right. I'll talk to you later. I mean, like, as soon as I push pause. Well, usually when I'm done talking to people, I'm like, Well, I really appreciate you doing this. And then I'm not going to see them again after I push the button. So I'm saying thank you for coming on the podcast.
Arden Benner 1:17:56
Oh, to me. You're talking to me. Yeah. I'm
Scott Benner 1:17:57
telling you. You were not looking at me. I was very, I was getting ready to click on some Oh,
Arden Benner 1:18:02
I thought you were talking to like your your listeners.
Scott Benner 1:18:04
I appreciate you doing this with me. Yes. Okay.
Unknown Speaker 1:18:11
I can we can say You're welcome. Thank you. You're welcome. Excellent. This has been fun.
Arden Benner 1:18:18
Well, it would have been fun four hours ago
Scott Benner 1:18:20
goodbye. A huge thank you to one of today's sponsors, G voc glucagon. Find out more about Tchibo Capo pen at G Vogue glucagon.com Ford slash juicebox. you spell that GVOKEGLUC AG o n.com. Forward slash juicebox. I'd also like to thank Dexcom, makers of the Dexcom G six continuous glucose monitor and remind you that you can find out if you're eligible for a free 10 day trial, the Dexcom G six or just get started@dexcom.com. Forward slash Juicebox.
Podcast just a couple of hours after this was recorded, we got in the car and drove Arden all the way to her new College in Chicago, right? In Georgia, and she's doing terrific. She's been there for a week today. And she's having a great time I made some terrific friends already. her roommates are fantastic. And we sat at a lunch last weekend and explained diabetes to all of them, showed them how to use Chivo Capo pen explained the insulin pump and everything that Arden does. We got all their phone numbers and everything's been going really well actually. Don't worry about it and she's doing terrific. But I wanted to point out that when we started this recording, I really didn't think we were going to talk about this Not because, you know, we're hiding it, but we just sat down to talk about management stuff. And then, I mean, you heard at the beginning of art and just got very honest and, and started telling her story. And so my hope for you, after hearing this story, I mean, really the takeaway I want you to have is one of resilience. I want you to remember that something scary happened. And it didn't change how Arden takes care of herself. Right? We understand, maybe more what happened that day, and we'll be able to protect against it in the future. But she saw it for what it was. And she didn't let it stop her from wanting to take good care of herself. As a matter of fact, as I'm sitting here, I just opened up Nightscout, which if you use loop, you know what that is. And I see that Arden just Bolus for dinner. 70 carbs. So her blood sugar is 104 She Bolus she's out there living her life. I think I've interviewed one too many adults with type one who have had a scary low and they let it they let it impact how they take care of themselves for years afterwards. And it really was my biggest fear after Arden safety was clearly you know, locked down after this whole thing. My first and biggest fear was that she might be scared to take good care of herself after this. And I'm just very grateful that she wasn't and I hope that you can take some of the some of the bravery some of Arden's attitude and keep it for yourself. Because every day with diabetes isn't gonna go the way you want. But you have to you have to dust yourself off and keep going. I'm very proud of her. I hope you enjoyed this conversation. I'll be back very soon with another episode of The Juicebox Podcast.
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#756 Swiss Diabetes
Dr. Gurpreet Anand is an endo practicing in Switzerland.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends, and welcome to episode 756 of the Juicebox Podcast.
Today's guest is an endocrinologist working in Switzerland. As a matter of fact, she's the Doctor of a past guest from the podcast. While you're listening today, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan, or becoming bold with insulin. If you're a US resident who has type one diabetes, or is the caregiver of someone with type one, please go to T one D exchange.org. Forward slash juicebox. Join the registry complete the survey help people living with type one diabetes while you help yourself and support the podcast. Every time somebody finishes the survey, the podcast benefits T one D exchange.org. Forward slash juice box. If you're looking for the diabetes Pro Tip series, it begins at episode 210. In your podcast player, your podcast player or audio app is where you should be listening to the show and subscribing. The podcast is available everywhere you get audio
this episode of The Juicebox Podcast is sponsored by touched by type one I just got back from touched by type ones. In person event, it was fantastic. You can learn more about it and learn more about touched by type one at you guessed it touched by type one.org. Also, please find them on Facebook and Instagram. The podcast is also sponsored today by us med get your diabetes supplies from the same place that we get our diabetes supplies from U S med. You can contact us med two ways by going to us med.com forward slash juicebox or by calling 88872115140. That's right, we're not in the same timezone our way. That's true. I appreciate you doing this. Thank you very much.
Gurpreet Anand 2:25
I'm really excited to talk to you and my personal thanks for the good work you are doing and contributing to the diabetes community. It's it's a great work.
Scott Benner 2:37
Oh, thank you so much. That's lovely. I, I don't usually start these with people's being so kind to me, your throw me off my game. I am very, very grateful for your words. Thank you.
Gurpreet Anand 2:49
Scott, you are a change maker. You are changing lives of people suffering from diabetes, and it's a great work. Oh, that's
Scott Benner 2:59
very, that's very kind of you.
Gurpreet Anand 3:01
My name is Gurpreet Anand I work as endocrinologist in Switzerland. Originally I came from India, I did my medicine there. And here I learned internal medicine and after why afterwards I specialized in endocrinology. I have been working in this field for the last eight years. And I'm really happy to be able to contribute to the lives of people, especially people with diabetes type one because it is a very, very difficult disease, but a very manageable disease, the patient can really change the course of the disease. If the patient agrees to do that. I have got two daughters, and my husband. We are actually all from India. My two daughters are born here. As a child, I always wanted to be a doctor. Because I my mother, she was a nursing sister. And she worked in a hospital and I saw the white coat. And I was amazed by the way bytecode and I wanted to use this byte code. That's why I became doctor and I have never regretted this choice. I'd love to be a doctor. How old are you? I am now 48 years old.
Scott Benner 4:27
Okay. I'm sorry. You said you live in Switzerland?
Gurpreet Anand 4:31
Yes, yeah. Okay, for the last 20 years.
Scott Benner 4:33
Oh, wow. That's great. So I have to ask first, I guess how you find the podcast.
Gurpreet Anand 4:42
I find the podcast great. I was introduced to your podcast to my patient because I wanted to know how what were the things which influenced life of my patient and she introduced me to your podcast and then then I started listening Do your podcast. And I was deeply impressed. And I recommended this podcast to some of my patients as well. And even they appreciate the podcast a lot.
Scott Benner 5:10
That's excellent. I have to I'm trying to remember. If I'm going to be able to mention who your patient was, I think it's, it's better for you if we don't say who it is, is that
Gurpreet Anand 5:22
right? Yes. But I think we both know it.
Scott Benner 5:25
Yeah. Well, I know who I definitely know who it is. And yeah, any astute listener of the show might figure it out, I guess. But, yes, but, but that's really wonderful. So she came to you? And or I guess, how does it How does it happen? Are her outcomes so uncommon for you that it actually made you ask, how are you doing this? Or how did the conversation begin?
Gurpreet Anand 5:50
So actually, I asked this question to each and every patient who comes to me for the first time, what is their experience with the disease? What are their goals to achieve with the disease? And that's why I came to know her and I came to know what deeply influenced this person to better manage her diabetes. And then she mentioned your podcast, I say,
Scott Benner 6:16
did it? Was it surprising to you, if when she said, it's from a podcast?
Gurpreet Anand 6:27
Not in a sense, because I'm always myself very impressed with the podcast industry, not only in diabetes world, but also other guys, because technology has made a lot of advancement. And basically, everyone can get information from everywhere if the information is useful. This is something which we should appreciate and support. And I was impressed after I listened to the podcast, because I really didn't believe her for the first time, because I wanted to know what is so good about the podcast? And as I listened to it, I was totally convinced that's true.
Scott Benner 7:09
No, that's lovely. Do I? What's the question? I guess maybe to you, it's not so different. But it was it odd to you that I don't have diabetes.
Gurpreet Anand 7:23
Actually, you are a person who doesn't have diabetes, but has a real contact with someone close to diabetes, and who could really with his own interest, learn so much about diabetes, with even patients without the VT diabetes to manage to have it in in such an appreciable amount of time?
Scott Benner 7:50
I think that I've always thought I guess that the mixture of my desire to help Arden and yeah, my loving concern for her mixed with the, I mean, the benefit of me not actually having diabetes, right, like so you get to kind of figure things out without going through them directly. You know, it's, it's easier to philosophize about how to manage a low blood sugar when your blood sugar is not low. Yeah, I can see. I mean, obviously, through the years and the conversations, how difficult it must be for people to not understand how their type one works, not understand how their insulin works, be caught in the situation and then be expected on top of all that to figure out the situation. It's just it's a, almost an insurmountable task.
Gurpreet Anand 8:41
Yeah, you're absolutely right. I think the problem is, in in case of type one diabetes, that there is a person with diabetes to be managed, and there is diabetes to be managed. These are two different things. And it is very difficult to separate one from the other.
Scott Benner 9:02
How frequently are people's personalities? A speed bump for them having success? I mean, what do I mean? Are there just some people who, through the sheer fact that they don't want diabetes, or they have, you know, some sort of I don't know if you would call it PTSD, but they're still shocked from their diagnosis, or angry does? Does that stuff weigh in very heavily when you're helping people?
Gurpreet Anand 9:36
Actually, in my experience, this is the main factor influencing outcome of diabetes because as you know, we have technology we have sensors, we have insulin pens, we have insulin pumps, we have hybrid closed loop systems, we have everything which can manage diabetes, but if the patient who has to To really get to know this technology and invest some time, it's not ready. Nothing works. It is the patient is for me, the main factor affecting outcome of diabetes and diabetes denial is so common. In the beginning at least, that it really it's the greatest barrier people used to call hyperglycemia as the greatest barrier. But I would say, acceptance of the disease, which is potentially manageable is the greatest barrier
Scott Benner 10:35
and not accepting it. There's real no click, there's no clear path to success if you're fighting against this the entire time. Yeah, right. It's going to win, right? It's just, it's got more stamina than you do. You know, diabetes doesn't need to sleep. And it can come after you when you're sleeping. Or, you know, in the middle of things, I'll tell you right now, like, break right now, as we're speaking, Arden is on a class trip. So she left. It didn't start well, and you knew it wasn't gonna start? Well, she had to be at her school at 1:30am. And then they sat them there for an hour, put them on a bus, bus them to an airport, sat them in the airport. And you know, by 615 in the morning, she's climbing on a plane for a three hour flight. Now, she hasn't been asleep, probably for close to 24 hours at the time that the plane takes off. And you know, we had had just multiple conversations and like art, and you're probably gonna get low on the plane when you close your eyes after all this. And sure enough, she did. Her CGM woke her up, she was able to handle it fine. There was no Wi Fi on the plane. So quite literally, no one knew that this was happening. But her, you know, in her seatmate who was a longtime friend, she managed that fine, she got out of the airport fine back on another bus. And then they dropped the kids in the middle of the Disney, I think Disney World, right? That's Florida, Disney World. It's 60, you know, between 50 and 60 degrees warmer in Disney than it was when she left New Jersey. And she's not allowed to go into her room for hours. And they just start marching around this park and the heat. And we did a good job. Like it wasn't too bad, we kept her blood sugars together. They weren't anything like what they usually look like here. But by the end of the evening, she tried to eat something she Bolus for it. And, you know, then the next five hours 10pm 1112 one two in the morning, we were just holding on with our you know, with our fingernails, trying to keep our blood sugar above about 65. And finally, at about one 130 In the morning, it just, it just kept dipping down and we couldn't stop it. And this is with an algorithm like taking her Basal away and trying. We got her stable, she slept fine overnight. And now this morning, with just a few hours rest, everything is much more stable. And I'm learning because this is a new situation. For me. I honestly think that her lack of sleep was the biggest problem in this whole thing. Because now that she's arrested, we haven't changed anything, she's back out in the heat and things are going very well again. I just I'm surprised every day at how this thing can throw monkey wrenches into the system because I'm about as good at this as somebody can be. And we were not good at it yesterday for about six or seven hours. But it is really testing my knowledge today. It's I don't know, I just I don't know how she would have gone and done this without this technology or someone helping her. I mean, without this stuff, she would have been, I would say scary or dangerously low two or three times already in the last 24 hours.
You know, I'm always saying go to touched by type one.org. But do you go you should because under the program's tab, you can click on something for instance, like upcoming events, where you would see that in September, the fall dance program has started. And it's Ladies Night. If you're in the Orlando area. Maybe you want to hang out with some other people who have children with type one diabetes or diabetes themselves. Go check out ladies night in October there's a family Halloween party. The Fall dance program continues through the fall right up to the dancing for diabetes showcase. And so much more touched by type one dotwork. I'm not making this up. A moment ago I had to stop recording To answer the phone, you know who it was? It was us med swear on a stack of whatever you swear on. Okay. US med little phone call it was like Ring ring. I forget exactly what they said I picked it up. It was an automated call. It told me that Arden had a prescription that was ready to ship had asked me to press one and I think if I want to ship it now, press two if I'd like to have it shipped in two weeks, or press three if I'd like to speak with a pharmacist, and I wanted to speak with a pharmacist. So I pressed three just like that. We're on our way, you can get that kind of service as well from us Med and you can do it without your voice cracking like mine just did. All you have to do is go to us med.com Ford slash juice box to get started. Or you can call 888-721-1514. So if you'd like to get your diabetes supplies the way we do around here, try us med us med accepts Medicare nationwide and over 800 private insurers they have an A plus rating with the Better Business Bureau and they carry everything from insulin pumps, and diabetes testing supplies to the latest CGM is like the FreeStyle Libre two, and the Dexcom G six. US med always provides 90 days worth of supplies and fast and free shipping. They've served over 1 million people with diabetes since 1996. And all they want is for you to get better service and better care than you're accustomed to getting now, US med.com forward slash juicebox or call 888721151 for links to us med touched by type one. And all the sponsors are in the show notes of the podcast player you're listening in now. And they're also available at juicebox podcast.com.
Gurpreet Anand 16:52
Scott, thanks for sharing that with me. Because I think this is a perfect example of technology working at its best person who knows the technology working at the best. But still, blood sugar has some inherent variability in Saline application has some inherent variability. And we have to learn to accept that, that there are going to be situations where we do have 100%, right. And the result is still not what we want. And we have to be really fluid flexible as you always tell just flow with the flow of diabetes because you cannot manage it perfectly well in all the situations there are situations which are going to surprise you time and time again. And this we can imagine how difficult it could be for people who don't even know what they can do. They can change I would
Scott Benner 17:57
like people to know when I told the story so that I could follow up with this is that when she was drinking the juice overnight, the the school had hired a nurse so there's a nurse living on the floor, you know of the hotel, and that nurses She's lovely. She's following Arden CGM. And I had called Arden to wake her up the nurse would have not known at that time that I was awake watching Arden's blood sugar. And I called out and woke her up, had her drinking juice. And at the same time I heard the nurse come into the hotel room. And she was speaking to her and she's like, are you talking to your dad on the phone and it was happening at that exchange right there. I want to be honest, that is the closest I came to crying in quite some time around diabetes, just that it was the middle of the night and Arden was trying to be on this class trip. And instead, you know, there's a stranger standing in her hotel room seeing if she's okay. I almost cried. I just listening to the exchange over my phone. And instead I reminded myself that without this technology, this would have been much worse that I knew what to do. And she knew what to do. Arden's been doing a terrific job while she was gone, and in the end, she has type one diabetes, and that is the factor I can't impact like that's always going to exist. I can't I can't sit there and be sad about something that I want. That doesn't exist, you know, so I decided to deal in the reality of what was and I pushed on my eyes and wipe the tears away and got her back on the phone and told her you know, I was going to watch to make sure her blood sugar came back up before I went to sleep and she should go ahead and go back to sleep and her blood sugar came back up and leveled off and we were good. But yeah, she's had diabetes since she was two. I don't really remember the last time it made me sad but but last night came pretty close. Yeah, yeah.
Gurpreet Anand 19:59
I can really only share my feelings because I personally have no experience with someone close having type one diabetes, I have patients. That's true, but I never experienced hyperglycemia. On my own I experienced with my patients, yes, but it is an entirely different different experience. If you have this experience in person. It can be a close patient, it can be your relative, and it is absolutely a different reality. Because once you experience hyperglycemia, every patient processes hyperglycemia in his or her own different way. Some people they don't want to have another episode of hypoglycemia. And that's why they keep their blood sugar levels high so that they don't fall. That is one barrier to better management of diabetes. The second barrier is once they even see the blood sugar level is just sinking. They overcorrect because they don't want blood sugar to follow. These are so many difficult issues which patients face. That it really sometimes
Unknown Speaker 21:23
it's very difficult to convince the patients
Gurpreet Anand 21:24
to do the right thing,
Scott Benner 21:26
right? It's paralyzing it stops you. Yes, I'll tell you the most proud I've been in quite some time is this morning when I woke up and saw that Arden had had breakfast, she Bolus for 50 carbs, and texted me later and said I said I got a bagel and ate some mixed fruit. My blood sugar was I forget what it was like 136 When I woke up, and she's like it's going down. Now, I don't know if this is going to go right. And I looked at it. And I said, this looks great to me. I said we've we dialed back or settings about 20% for the day for her to be out in the heat walking around. So because she's on an algorithm, basically, everything's dialed back 20% Her Basal correction factors, carb ratios, everything's just kind of dialed back right now. And I said, I'm looking at the graph, it looks very much like it's gonna level out to me, I think you did a great job. And now this a number of hours ago, she's, she's been very stable about at 115 bout between 112 and 116 for the last two and a half hours. But she did not act scared that she got up in the morning. And she did what she knew was right again, and just went right back to it. She was a little nervous. But I think the nervousness was, it's because she's alone. And she's still about to go out and live a day that is not normal for her trudging around the heat, you know, for however long they're going to be doing this. But I was proud of her that she just she didn't blink, she did it again. And, and did a good job. So I think it's there. You know, I don't think there's any shame in leaving her blood sugar a little higher for today. Yes. And I know that some people might hear that and think, you know, that's ridiculous. I'm saying like 112 is a little higher, but for her it is it's it's probably 20 points higher. You know, which is a pretty big deal for, you know, long term, but for the next couple days is meaningless. So anyway, I was proud of her that she she got back out there and tried it again, like she she doesn't give up. And she's knows what it's like to be low. And you know, so far so good. Nothing's happened. That scared her too much. But I've also spoken to adults that have had such scary. Like you said, you know, such scary situations where they were alone that they just have a hard time trying again, how is it for you to? But I guess my first question should be do you treat all of your patients with the same information? Or do you tailor tailor it to what you believe they can manage and accept?
Gurpreet Anand 24:10
This is a great question. I think it is impossible to treat, all type fine one patients alike. Because every type one patient brings a completely different kinds of resources to the consultation. And I have to accept and respect the values because everyone is going to reach the goal, which he or her self establishes the goal because the diabetes management is management to the patient himself. I am just a coach. I'm just an advisor who can help give basic understanding about diabetes. But the management is left to the patient himself because he has to deal with the diabetes 24/7. And I have to deal with the diabetes every three months. And it's an entirely different situation.
Scott Benner 25:08
Yeah. So what do you give them? Like a high level overview and hope that they pick out the details? Or do you do literally look like? Is that a weird thing to have to do to judge somebody because you are quietly judging their ability, right? So that you can make, I don't mean judging in a bad way. I mean, it like you have to assess them, and decide what they can handle. Is that right?
Gurpreet Anand 25:36
That's right. So it is different in every scenario. For example, let's take the example of someone who has a new diagnosis of type one diabetes and comes to my consultation for the first time. The first reflex from me is to just get to know this person, how this person is coping with the new diagnosis, it is mostly a shock for everyone who has the diagnosis. So it is okay to talk about this shock, shock or believe it the patient tell them that it is a shock for most of the patients. So it is normal, just normalize the shock situation because it is normal for each and every one who is going to have diabetes, especially type one diabetes, and then tell them that it is a slow process to get to know the disease to get to know how to manage the disease, but it is going to get better each and every day, we mostly treat the type one diabetes patient on ambulatory basis. Early earlier patients used to get hospitalized. But nowadays, it is so much ambulatory management, they have to come to the diabetes nurses, they have to come quite regularly in the beginning so that they know how they manage hyperglycemia how they managed hyperglycemia. This is kind of repeated education on on a daily basis in the beginning. And afterwards, we can change the frequency and see the patients every month afterwards every three months. But it is a process they have to go through the process. And I tried to give them the analogy of driving a car, it is very overwhelming in the beginning, because you have to understand that you don't speed up the car, you know how to put on the brakes. These are the things they have to learn in the diabetes as well. Sometimes they have to come off the mark. But there is also a learning and they learn how to apply brake slowly, they learn how to push the gas pedal fast, they learn and it gets better, but it needs time.
Scott Benner 28:03
I understand why you like the podcast you and I think a lot like about these things, don't we have you
Gurpreet Anand 28:11
I can also really say yes to that because I think we as human beings. We want to live life normally. And if we can bring the understanding of diabetes same as how we live our lives, we can get the patients to understand better what what they expect from the disease, what they expect from themselves. But what I mostly end on a positive note is that everything you do has a consequence, if you decide to treat the disease, it is your choice. If you don't decide to treat the disease, it is also a choice. You cannot not decide you have to decide something and you're going to see some results.
Scott Benner 29:00
It's not happening to you as much as you're deciding which path to take once it becomes clear that this is your story and you have to go live it. Yes. This is kind of an odd question. But do you ever walk into a room and just not recognize a patient? Like I'm trying to think of how hard is it to keep everybody's story straight in your head? I realize you take notes and you have charts. But do you ever just walk in and think like I do not remember her and then have to look down? And because if you don't I mean you're in a really interesting relationship. Because you see a lot of people, they see one doctor. So in their minds, you've probably been thinking about them for the last 90 days. And you're just waiting to see them again and help them like that's the attitude you come into a doctor's appointment with like you have questions. You've learned things you have, you know, new ideas to try. And then you look up and this person who hasn't seen you in three months is standing in front of you I was wondering how difficult that is as a physician.
Gurpreet Anand 30:04
So, my personal take is definitely I don't remember all the stories in my head. That's why I take notes. But I try to remember something in their personality, and try to link that something in the personality with the story. So that I just have some basic cues, because each and every human being likes to be acknowledged as a person, without judging them, just just like something, if someone is a good tennis player, I tried to discuss with them their hobbies as well, because so that they just have the feeling, it is not always the disease, it is the person who has the disease, which is in in main point, because if the person is addressed, the disease gets addressed on its own. Because, basically, if managing the disease is so important to this person, this person is going to manage the disease very well. And I have to address to this person who is coming to me.
Scott Benner 31:15
Yeah, you know, I tell people, what, I have spoken to a number of people privately in my life. I mean, as a matter of fact, I think part of what got me ready to make this podcast is that I used to be a person who others would direct people to, they'd say, Oh, you want to talk to this guy, like, maybe he'll call you and talk to you, like he talked to me. And so there probably have been hundreds of personal phone calls, that would have made great podcast episodes, you know, trying to talk people through new ideas and get their, their minds kind of straight. And what I've noticed more often than not, is that the desire to do well, is maybe one of the most important parts of this. And I guess you could like call that attitude or, you know, frame of mind or whatever. But if you if you want this to go well, and you have successfully searched down good information and tools and an understanding of how to use them, usually things do go well, you know, and the level of what well means, you know, you've pointed out very clearly is up to the person. And I tell people all the time when they're talking about like, how do I set my basil, I learned to say, basil, his job is to hold your blood sugar stable at a number you want it at? You know, because the number I want it to sit stable, I might be different than yours for a number of reasons. But I just think that I can't put my finger on it. You know, exactly. I don't think I can articulate it perfectly. But the people who want it did go well. I know this doesn't sound completely clear. But oftentimes, they get what they expect. And I find that to be repetitively proven out. People who have their heads down, or they seem over too overwhelmed at the time, you know, might be a way to say it might be they're not ready for the information. It's just it overwhelms them too much. But there's something about that energy that like I'm going to do this. It's important. You know, I guess the in AAA they call it fake it till you make it. Right. But I think it's important. I think that that attitude is it's one of the tools.
Gurpreet Anand 33:44
You're absolutely right. I can tell you an example from a patient who came to me, he had a bipolar disorder. And he got the second diagnosis of type one diabetes. So it was very, very hard, because he was already finding it very difficult to manage bipolar disorder. So the diabetes was on top of it. He was also the patient I had to take in. I had to admit the patient just to let him know the basics of treating diabetes first. And it was very difficult, but I talked to him, I told him in the beginning. It is difficult, but it gets easier. When you see you can establish a routine. And it starts with the looks like a lot. But if we break all the pieces down to very basic information, it gets easier and easier. And luckily this patient has gone into the honeymoon phase and he's still in the honeymoon phase and he has very little amount of insulin and is so stable, what my motivation is with the new diagnosis of type one diabetes, because I have seen that in so many people nowadays, that I stress the need of starting in Saline, as soon as possible to just make a few beta cells which produce insulin in pancreas to just give them the chance to survive the insult, because in the end, we don't know what kind of insult happens in a patient with type one diabetes, how early are we can we save some beta cells, and if we can save some beta cells, this is like a big, big advantage for type one diabetes patients, because these patients are going to have much better time managing the disease if the start or the end, mostly, people see that it works very well. My second motivation is even though they are in a shock situation, by the new diagnosis, I tell them, the body is going to give them much better fitness segments. As soon as the blood sugar values are not in 20s. So we use the unit's 20 millimoles per liter. And it is in the range of four to seven, they are going to see a difference. And that's so true. It is very important to tell Typhon patients in the beginning, not about complications, but about the quality of life, because that is something they can relate to it in the immediate period, if they really put efforts to it.
Scott Benner 36:53
I wonder sometimes if people's lives have gone, so unlike they've hoped that they don't imagine that this is possible. Do you know what I mean? Like hope is Hope is something that sometimes built from hope. So if your life has gone, you know about the way you've hoped or the way you've expected, and then you run into this diagnosis, I bet you it's easier to believe that this can work out well for you as as you know, too. But if everything has just gone wrong over and over and over again, and then on top of this, you have I mean, think about bipolar disorder, and then type one diabetes. I mean, I wonder where you mind that hope from? You know, and that's where it's obvious it has to come from the physician, or the or the support system? Because they they don't have it to use, somebody has to give it to them. Yeah, that sounds incredibly thoughtful. Have you I've had at least three or four people on the show who have bipolar and type one. auto immune, inflammation, these things. It's a real it's a real scourge on humanity, that, you know, the idea that we have not found a way yet to, to stop that autoimmune response is, I mean, it would just be one of the greatest things that happen to people. There's part of me that's very hopeful that AI sounds crazy, maybe but that COVID has shined a light on the need for research. And I think I think maybe now that COVID is is omnipresent. I really, really think that we might get some more answers about how inflammation works and how to stop it over the next handful of years. But it's just it's terrible. I mean, to have one or two. I mean, they feel like your body's attacking you on multiple fronts is it's overwhelming. Yeah, yeah. Okay, so what? This is the fun part, when I talk to a doctor, what do I do that you think is right? And do you do I ever say things that you're like, Oh, God, don't say that.
Gurpreet Anand 39:11
Do you mean as a patient?
Scott Benner 39:12
I mean, as a as a podcaster? When you're listening to this podcast, do you ever think like, he shouldn't be saying that? Or do you generally speaking, agree how what's your experience like as a listener, I guess?
Gurpreet Anand 39:28
I must say, I generally agree because because you resonate with the people having this difficult to see is and I have the feeling. All your advice comes from a different level of experience, because you talk openly about your experience with Arden. And what I particularly like are your podcasts with Jenny Smith, because she brings some input From her experiences well into the podcast, and I literally love your podcast.
Scott Benner 40:08
Thank you. I was, I didn't know, I honestly didn't know what you're gonna say. But I mean, I would have been interesting. If I was you're like, oh, never say this again. But the wait. So the way I sort of see it, it's, um, you have to understand you mentioned earlier that the medium is valuable. Like, you have to understand that 100 years ago, if I had information that I thought I was going to share with people, that maybe the best I could do is to write it down somewhere and hope they saw it, or stand in the middle of town on top of a, you know, a crate and yell out to them. This, this is, this is the best way we have to communicate right now on stuff like this. And but I shouldn't have said that, I should say, but, but there are constantly new people coming into it. So you have to create this entity that has the information, but is entertaining enough to hold people as listeners. And the reason that's important is because if the podcast doesn't exist as a popular entity, then when new people need the information, it won't be here for them. So so the stuff with Jenny, the management stuff, or when we talk specifically about management stuff, there's an argument to be made that you could just make those episodes. And you wouldn't need the interviews with other people, although I do think communities a huge portion of managing type on but the problem is, is that if it was just the static information, people wouldn't find their way to it. So you have to create this kind of living entertainment that brings people in so that once they're here, they can go find the guy in the corner who's standing on the woodbox yelling with Jenny about Pre-Bolus thing. And it's a, it's a delicate balance. It really is. I think that's where we go wrong. A lot of times helping people with diabetes is that we say things like, oh, that's on a website, or you know, here's a pamphlet, people aren't attracted to stuff like that. And they're already in a bad situation. And now you're telling them go read a pamphlet, go read a book. I don't want to read a book, I just found out my kid has diabetes, I just found that I have diabetes I want I want this to work, I want to be saved, I don't want to feel like I'm getting my blood sugar's going low every four hours, I don't want to be scared to go to bed, I don't want to be scared to put food in my mouth. And that that turmoil is happening for them 24/7 You need to be able to come in and just give them enough that they can make a meaningful step forward. So that they can believe that there are other steps forward to take. And then you just sort of keep layering the information over top of them and they and then they absorb it as they can because then that's the next problem for me is that everyone who's listening isn't in the same place. So I can only put out one set of episodes. And they somehow need to capture the imagination, invigorate the hope of and hold the attention so that people can spend enough time inside of a ticket out of it what they need. It's a it's a unique platform that allows for all that to happen. I'm very grateful for it because I used to write about this stuff, and it's not as effective.
Gurpreet Anand 43:36
Scott, do you know why is it effective?
Scott Benner 43:42
Well, I can start off by joking and saying I'm delightful. And that's why. No, no.
Gurpreet Anand 43:49
That's absolutely right. But I give you another reason. Out of my perspective. We as humans, have not changed a lot over 200 years. We used to value word of mouth, we still value word of mouth. We used to value something valuable for us. We still value something valuable for us. If someone some patient with type one diabetes, find value in your podcast. No one is going to prevent him from listening to your podcast. That is the main important message you want to be of value and you enjoy doing it. And you bring your authenticity to it. And that's why your podcast is so valuable.
Scott Benner 44:45
Oh, that's very nice. I am I do really? I really do enjoy making it. I am genuinely fascinated when I talk to people. I don't think I've ever had a conversation on here where I've But gotten off and thought, Well, what a waste of time, you know, like, I just want to get to know somebody or to hear their specific story for people to get there to get there to be able to get their thoughts out, you know, there's someone else listening who thinks something similar. And there's just such a, there's such a comfort in hearing someone else say something that you're thinking, you know, and to, until be able to give that to people who are in such turmoil at some point, I think it's a gift really, I am, I never, you know, as a as a kid growing up, or even as an adult. You know, I think we all think the same way, right? We're trying to sustain ourselves, I'm trying to make money, I'm trying to buy food, I'm trying to put a roof over my head and help my children. And, you know, there are times when you come to the conclusion, like, I'm going to have to take a job because it pays me to expect that your job would actually help somebody would be a huge win. If you had a job that you didn't like, that helps somebody, it would be a huge win. But to have a job that you like, that helps somebody and puts a roof over your head. I couldn't possibly feel more lucky about that. And that's why I work so hard to keep it going. Because I a see what it does for people. But honestly, it's the best situation I've ever been in. You know, I don't, I don't want this to stop. And the only way I get to keep it going is if it continues to innovate and help people and find ways to new newer people and find ways to to keep older listeners entertained and with value. Like I don't want to just come on here and say stupid. You know what I mean? Like just for people to come on. Like, I want you to leave this hour feeling heard and seen. I want you to feel like you learned something that's going to be valuable to you. And I want you to feel like it wasn't a drudgery to get to that information. I don't know I love this. I guess you're right. I guess if it was a couple of 100 years ago, I think I would probably be doing some form of this get on talking to people, I really do enjoy it.
Gurpreet Anand 47:19
You would have been surrounded by a group of people like a campfire. All Okay, one patient's just surrounding you, and asking you for your advice. I can really imagine that team.
Scott Benner 47:33
Well, that would be nice to do it
Gurpreet Anand 47:35
beautifully.
Scott Benner 47:36
Thank you, it would be nice because I could stand up while I'm doing it. Because I'll tell you the one downside of this job is I am sitting too much. So I do need to get up and move around a little bit.
Gurpreet Anand 47:47
That's, that's important for your health.
Scott Benner 47:49
Yeah, you guys are gonna kill me making this if I if I ever if I go over while I'm making it all, I'll teach someone in the house how to put the episode up so people can still hear it. But But No, but seriously, it's it's a joy. But it really is a joy to do. And you have to be a little single minded about it too. I record this show, I mean, at least four times a week. There are times when I do it twice a day. My schedule is I mean, you and I are talking in February, if you wanted to be on the show right now. I think you'd have to book in November. Yeah. So it's, and that's that's the part of it that doesn't get spoken about enough. It's the people's willingness to come on and share or ask questions. It's the only way other people are going to get the content. You know, if there's no one for me to talk to this ends pretty quickly. You know, you eventually get tired of me talking to Jenny. We're talking to myself.
Gurpreet Anand 48:55
I think as long as you are offering your hard work, you're offering your interest, you are never tired of talking about diabetes. We can feel it in your podcast. That is so important because the way you do it, you bring freshness to the podcast, you bring value for your audience, and that is all which matters in the end. In the end it is the value added to your audience so that they really find it worth listening to your podcast. And that is the biggest multiplier you have. If your audience finds value, it's going to attract even more audience and satisfy your podcast is going to keep on living and I would really wish your podcast to keep on living because it is helping coming community of diabetes type one patients
Scott Benner 49:53
I have to tell you that you know there is an avalanche of notes and letters and even on the Facebook page at this point, I think that's how most people try to contact me. At this point, there's an overwhelming number of people who are a little farther down the road now, and they come back to tell their story about, oh, I found the show six months ago and like, look where I am now. And they're sharing their, you know, their successes. And I think that's great. I think that other people need to see, they need to see someone that's a little ahead of them on the path, having success, telling them, I used to be back there with you. But I really think you could be up here with me. And the truth is about the value. So So sort of a weird business, the side of it is that if people didn't listen, I couldn't make the show. And so it's their support that creates the value. And one specific example is, like we're doing a series right now about thyroid disorder, right? On Fridays, Jenny and I are like putting out these short episodes explaining hyper and hypothyroidism, Graves disease to people, which is something that is incredibly common in a type one, you know, diagnosis, and people don't have the information about it. And oftentimes, doctors are not particularly good at managing it either. But it's not. It's not a it's not at the top of people's minds. So my ability to dig down and do smaller topics, is because I know the listeners will support it. So you know, all of the all of the kindness aside about how the podcast helps people and, and how much I enjoyed doing it and all of that, there's still that component of it, that if it doesn't get downloads, then advertisers go away. And when advertisers go away, my wife is going to ask me to make money a different way. You know what I mean? And then the podcast disappears. So it's people supportive the podcast, their willingness to listen to topics that maybe, maybe they wouldn't believe is important to them. But I think they find the podcast valuable enough that if I put something out, they think, Well, if he's telling us about this, maybe I should listen. And, you know, when we're done with thyroid, we're going to do celiac. And, you know, we're going to continue to pick through things like that there, that are going to come up in a lot of people's lives, and they should know how to look for it and, and how to manage it if it should happen. But again, that doesn't exist without the support of the people listening, you know, if they don't, if they don't download the show and listen to it, then I can't keep making it. So it's really as much about their effort as it is about mine. As far as longevity goes.
Gurpreet Anand 52:45
Yeah, you're absolutely right. I don't know whether we are ever going to come to this. My main reason for coming to this podcast was to tell community of type one diabetes patients one tank, and that one thing is their management of type one diabetes, and their management of their own life is going to be totally aligned. If they are having a good life, they are going to manage their diabetes better. There is no question about it. If they're having difficulties in their lives, it is almost impossible to get the diabetes well managed, because diabetes and life go goes hand in hand. And that is very important for type one diabetes patients to know that means if their life is not going well, they can intentionally put some efforts to manage the diabetes well, because it is going to have repercussions in their lives. The same goes the other way around. If they are managing their life, well, they are going to get the motivation to keep the diabetes well as well. And it is very important. That's why to have good routines. That means if they know how to manage situations with hyperglycemia, if they know how to manage situations with hypoglycemia, and they keep on doing it, they are going to do it almost the same way in difficult situations. But it doesn't happen if the life gets difficult. And they start then to manage diabetes. Well it doesn't go this way. Because in periods of difficulties, we as human beings are at our worst. Only when we we are feeding Good, we are feeling happy we find life worthy living, we are at our best. So that's why there is another reason for type one diabetes patients to just gather enough courage at the maximum diagnosis of diabetes, to invest some time and effort to get to know the disease so well, so that they can manage it. Because ultimately, they are the manager of the diabetes, and they can do it with today's technology, we have so much support. So many things get managed very, very well.
Scott Benner 55:41
Are you also talking about the personal happiness and contentment, calm? Things like that? Are you talking about just a general ease in their life, staying away from people who are difficult to on their psyche? Jobs that make them upset, like how far are you talking about this about having life in a good place, so that the management can be easier.
Gurpreet Anand 56:11
It is actually on a very, very broad face. That means if they each and every one among us, wants to have some control in our life, on this disease, and if we have this feeling of control, a feeling that we can manage the situation, it is a very different feeling of contentment. And it goes so much for life. If if I can tell, I can choose my profession, I can choose my lifestyle, I can choose and manage everything the way I want. That is contentment. It is true for diabetes, as it is true for life. So just imagine if you have to do a job, which you don't like to do, that is almost guaranteed discontentment for your whole life.
Scott Benner 57:10
But when you when you're given diabetes, almost like a job that you don't want to do, then the key after that is to find a way to do it in the easiest, most comfortable way for you, so you're not fighting against it constantly.
Gurpreet Anand 57:29
There again, I try to give an example to my patients, I tell them, Look, this is not a disease, which any human being is going to choose. It just comes and when it is there, there is a choice to be made to manage it. Or let the disease manage itself. And it is far better to manage the disease yourself. Because then you can have phases where you can decide, okay, now I'm not feeling very good in my life. Now I'm deciding to just ignore the management of diabetes, but you have the control, you have already managed it. Well, it would be very difficult, then for you to manage it badly.
Scott Benner 58:26
Yeah. And then from there, then that's when you need to know, like, what's next. Like when you've made the decision, like I'm going to do this well, like I'm gonna put in the effort. And I'm I want these results. The truth is that you can put in a lot of effort in the wrong way. And it just ends up being frustrating. I think that's why I can't believe I'm going to say this year, but I think that's why those pro tip episodes with Jenny and I are so important because you have to know how to let lay down that foundation like okay, I've decided, I'm going to build a new house for myself now. What's the foundation look like? How do I get the walls up? How do I get the roof on? How do I do this in the right order? You know, how do I stop myself from, you know, trying to I don't know, you know, nail in a screw and I need a screwdriver. Like you have to understand the tools for the job, how to build that foundation. And then once you do that everything you're talking about becomes much, much easier. Yes, so I guess cliched to say but you want to put the work in up front so that you can enjoy it afterwards. You know, it's hard to build a house. It's harder to live 20 years in a refrigerator box. So, you know spend three months in the beginning, getting a roof over your head, and then that kind of happiness and ease that you're looking for is so much easier to find and maintain. It's just you got to put the work in I'm always a little saddened when people reach out out to me and say, Look, I hear everybody saying this podcast is helpful, but I don't have time. And I always answer them, like, very honestly, I'm like, honestly, I think you, you don't have time not to like you have to give time to this. Yes, you know, do a little work now. And, and the rest of the time is much easier. Can I Can I ask you a question that might have nothing to do with this, but sort of does? In your culture? I'm, I'm speaking specifically about in the Indian culture, there's a wave of type two diabetes. Is that surprising to you? Is it? Is it something you can put your finger on? Like, why does it happen?
Gurpreet Anand 1:00:42
That's a good question. It depends upon our basic change in eating habits in India now. And the ethnic relationship to beta cell mass. People in Asia, they are from their ethnic built, they are thin people. And nowadays, with change of eating habits, they tend to get more fat deposit on the abdomen. And that's why type two diabetes incidence is exploding in India, China, because these people have changed their eating habits to more or less to the western culture. And their body is not adapted to store fat in healthy places, they store fat in the abdomen, and they get very easily type two diabetes,
Scott Benner 1:01:43
I have to say that I live in a part of in the United States where there's a pretty large Indian population around me. And my daughter has a number of friends who are Indian, so we get to see Indian families. And I think that the one thing I've noticed, is when people immigrate into, into the US, that the availability of food, and it being so everywhere, you know, it's so easy to go to a restaurant or to a store and buy things. They they sometimes people fall into that trap of just Oh, it's you know what I mean? They're always at restaurants, or they're always doing this or that. And it's, I don't know, I see it, I see it a lot, honestly. And I hear all them talking about my husband has type two, my wife has type two. But you know, I just didn't I don't completely understand it. I thought maybe you'd be in a unique position to explain it. So I appreciate that very much. It's a so that you're saying the thing to do is just eat cleaner, eat healthier, and exercise, try to keep that that weight off your abdomen.
Gurpreet Anand 1:02:58
That is true. Yeah, eat healthier, and sometimes also plan some phases with which you just don't eat. Like time restricted feeding. Because in our culture nowadays, it is getting more and more importance because people are snacking almost every time. They have snack in the afternoon, they are having their main course meals. That's too much storage happening in our body, whichever body doesn't need because we have the move of ourselves.
Scott Benner 1:03:30
Yeah, I believe that, that restricted time eating is is helping me a lot as I get older. I try I try very hard to eat between like 11am and 7pm. It's the best I can. And it's a big deal. Like I've noticed a great benefit for myself. So far. Okay, so is there anything that we haven't talked about that you wanted to have I skipped over anything or, you know, do you feel Do you feel a calling to say anything else, I want to make sure that you that you get everything you want out of this experience?
Gurpreet Anand 1:04:05
I just want to tell your audience that in the management of diabetes, the most important variable is not diabetes. It is the patient himself. If he thinks it is verted to manage the disease, whole technology doctors they are available to help you but the first step has to be taken from you. If you tell you want to manage this disease, this disease can be managed very well. Nowadays, a patient with 6% Hva warranty can have 116 years to develop long term complications. That means long term complications out of the picture. Nowadays, it is the question how well we can live despite the stack font diabetes, and it is possible to live an absolutely normal life, but it comes with the price of getting a different routine established and following this routine. Your whole life. That is the hot price.
Scott Benner 1:05:27
Okay. Yeah, I appreciate that so much. I can't tell you I. I have I am so sorry. If you give me a question, hold on one second. It's gonna be kind of strange. But Arden's trying to call me she has a question. So I will hold on to you. And then we'll get back to our conversation for one second, but she's just in an awkward situation. Hold on. Hey, yards, go ahead. So I.
Yep. You can just test one more time. And then yes, just make sure make sure that numbers like not wrong, right. Not right. Do you have other stuff with you? Okay, yeah. So go ahead and just test and then see if have you been sitting on the sensor maybe or something like that? Oh, okay. So go, I'll stay with you while your test, okay.
So I think the thing you're running into is that you Bolus really well for breakfast, but you probably still have some active insulin. And then you're walking around so much. So you might need to do you have one of those bars with you though?
Okay, so you drank the juice when? Yeah, I think so. All right. And then and then just Arden, when you when you go on that ride, stick a juice box in your pocket, make sure you have one with you. Okay. All right, text me when you get back
by. I'm so sorry about that. No problem. I'm gonna tell you what she said in a second. But I also wanted to, I don't want to skip over what you said. You know, I think you're right. I think that for everybody who has access to that technology, they really do hold their own possibilities in their hand, you know, and it is, it's so important not to ignore it. And if you can't get that technology for some reason, I still think that there is a way with targeted testing and paying attention that you can, like you said that you don't need to be running around with a five a one C right. Like a mean what you just said a six a one C is a is a pretty good shot and a long and healthy life. Yeah, so that's important. So where Arden is is that this um, you know, she's, she's in Disney. And she is using their past the the disability pass. So what it allows them to do is to schedule a ride, and then show back up at a certain time to get on the ride. So I think what's happening is she's walking and doing a ton of walking in between, right. So she has this meal this morning, which is a perfect like her Bolus was absolutely terrific for and then they go out and they're walking and then they get the note. Hey, come back to the ride. It's time for you to go. So they're hustling back to the ride and just when that happens, her blood sugar just drops like it just it heads over. So she said to me that I like can I go on this ride still? Because she's, you know, she's like, it's time to go on. Like we've been waiting an hour and a half to get on this ride. It's now our time to go on. And now my blood sugar 65 And I have an arrow down on my Dexcom she's like so I just drank her juice. But I want to know like, Can I can I get on the ride she said I tested a little while ago is 120 and she's like now all of a sudden so she tested again. She got a 60 you know a matching blood sugar on her on her test versus her CGM and She's like, What do I do when I was like, she said, I'm going to eat some gummies, I really want to get on this ride, she's like the juices in, I'm going to eat the gummies. And then I said to her just stuffing other juice in your pocket before you get on. So hopefully, I mean, I have to be honest with this is a real time situation. Hopefully this goes, okay. And I just told her like, you know, get a hold of me when it's over. Now the nurse that's on site actually just texted her to to check on her, it's been very nice that that this person exists. But it's fascinating for me to see, even at a 20% reduction of her insulin, once she's walked around for a couple of hours with any kind of active insulin onboard, it's just, it's hard. It's our settings are obviously are obviously meant for when she's in school. And when she's kind of sedentary, you don't I mean, I'm not moving around very much. It's incredibly, incredibly interesting, I'm going to have her take away another, probably 10 or 15% off of her settings for the rest of the day after she gets back from this. Anyway, it's been a real learning experience for me, I think that um, and her. And I think it's a good example of, you know, you can think you have this thing all together, and then you change a couple of variables, and it almost feels like a completely different existence. Sorry, that'll happen in the middle of your thing.
Gurpreet Anand 1:11:27
No problem. First of all, I just wanted to I just heard your talk. I didn't hurt the art inside, but I heard your talk to the art and she must be proud to have us father.
Scott Benner 1:11:42
Oh, I hope so. I think she is Yeah, I don't know why you're saying that. Because I'm just being myself, but, but I appreciate it.
Gurpreet Anand 1:11:52
You're, but you're just being yourself is so helpful for her. And it relieves her a lot. And she's also actively thinking because it's her disease, she she is managing it perfectly with your health. But you are a great resource for her from the beginning onwards, because she was just too she could not manage the disease at that time. It was you. It is so nice to see such such a good father, who who could learn to manage this difficult disease, and is not only managing that he's offering his help to the whole community. This is worth appreciating Scott,
Scott Benner 1:12:41
thank you. Wow, it's very kind of you, I really do appreciate it. I'm now just sitting here wondering if everything I just said to her is gonna work out. So
Gurpreet Anand 1:12:50
it is going to work out. But one thing I just want you to tell also your community is in case of movement, just shutting the insulin down is not going to help alone, it is definitely going to reduce the amount of further reduction of blood sugar. But there is a need of additional carbohydrates because of a body normally manages also on the basis of two different hormones, which are counter regulating effect of each other. Of a body in case of movement. When our body produces insulin on its own, gets the help of glucagon with activity that means we produce more glucose on our own without supplanting it, supplementing it with food. That's why someone with type one diabetes who is very good managed has to add carbohydrates at regular intervals, especially if there is a lot of activity going on. And this is something which people who love to do sport don't like to supplement every 30 minutes to 60 minutes give themselves some amount of carbohydrates. But this is needed because this is replacing the work of glucagon which of a body can naturally do
Scott Benner 1:14:24
Yeah, yeah I mean there's less than the algorithm does its best right and but taking away insulin taking away and so like you said everything listen, I talked about time, everything about insulin, his timing and amount, right. So as you can see over the last couple of hours, I'm looking at Arden's last three hours 133 101 15 112 112 I mean this goes on two and a half hours, and then all of a sudden she gets a little rise to 125 and then I'm gonna guess and that was a bad About a half an hour ago, I am going to guess that I know what's happening. Her algorithm is set up to auto Bolus. So she hit 125. And it auto Bolus with no concern for the fact that she's walking the whole time. Yes, that's what happened. So I am going to have her turn off the auto Bolus feature. Right think that's going to help her while she's walking around. Okay. And by the way, just for people listening, we're talking about loop. It's just DIY loop that she's using this during this recording. But also, what she called me with was exactly the right thing. She knew what to do. And she did it. She was just looking for confirmation. She was like, Look, can I get on this ride or not. And, and right now we have a diagonal down arrow, which is an indication to me that the carbs hit her. And she's gonna bounce the other way this, this algorithm is going to start bolusing when she gets the 120. And I'm going to let it Bolus a little and then we're going to shut off the the auto Bolus, and I think that might get her through Disney the rest of the way. Okay, cool. Well, I appreciate you helping me with this. And I appreciate all of your insight and your kind words, and the work you're doing for people. We didn't spend any time with it. But someone with your perspective, and your knowledge. And the I mean, obviously, you're just the kind person who sees the, the need for all the things that we talked about today. You know, there are a lot of people who don't get lucky and get good doctors like you. So I appreciate what you're doing as well. And I think it's wonderful.
Gurpreet Anand 1:16:43
Thank you very much, Scott. It was wonderful. Having the opportunity to talk to you and my best wishes for keeping on doing the good work you're already doing.
Scott Benner 1:16:55
Thank you. I appreciate that. I absolutely well, I have no plans on stopping
Well, I'd like to thank you, Preet for coming on the show. This was absolutely terrific. I also want to thank you, us Med and touched by type one, first of all touched by type one.org. It's easy to remember it's easy to type. Go check them out. And then of course us med is that 888-721-1514 Get your diabetes supplies the way we do from us med us med.com forward slash juice box, links in the show notes links at juicebox podcast.com. To these and all the sponsors. If you're enjoying the Juicebox Podcast, please share it with someone else who you think might also enjoy it.
Hey, you can also check out the private Facebook group. For the Juicebox Podcast. It's called Juicebox Podcast type one diabetes. It's a private group that now has nearly 29,000 members in it. You can be one of them. There are people in there with type one diabetes, type two diabetes, there's caregivers, people living with diabetes, all talking together about type one and type two diabetes, how they use insulin, what they eat all kinds of answers to all kinds of questions like if you ever thought to yourself, I don't understand why this blood sugar won't come down. I wish I could ask somebody at Juicebox Podcast type one diabetes on Facebook, you can have as many friends as you like and they'd all be happy to lend a hand. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast.
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#755 Bold Beginnings: Exercise
Bold Beginnings will answer the questions that most people have after a type 1 diabetes diagnosis.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends, and welcome to episode 755 of the Juicebox Podcast.
Jenny Smith and I are back today with another episode of the bull beginning series and today Jenny and I are gonna talk about exercise. While you're listening today, don't forget two things. One, Jenny works at integrated diabetes.com. You can check her out and hire if you like, and to nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. We're becoming bold with insulin. If you're a US resident who has type one diabetes, or is the caregiver of someone with type one, in fewer than 10 minutes, you could go to T one D exchange.org. Forward slash juice box and fill out their survey. When you complete the survey. You've helped the podcast, you've helped people living with type one diabetes, and you may just have helped yourself T one D exchange.org. Forward slash juicebox. Hope you're enjoying the bowl beginning series. It's not done yet, there's more coming. If you've missed the earlier episodes, you don't even have to listen to them in order if you don't want to just go find them.
This episode of The Juicebox Podcast is sponsored by touched by type one, please go learn about my favorite diabetes organization at touched by type one.org and find them on Facebook and Instagram while you're at it. Today's episode of The Juicebox Podcast is sponsored by in pen from Medtronic diabetes in pen is an insulin pen that offers some of the functionality that you've come to expect from an insulin pump. I know you're thinking, Oh, Scott, please tell me more. Well, I will. Yes, the pen is a pen. But it also has an application that lives on your smart device. This app shows you your current glucose levels, meal history, dose history and activity log glucose history, active insulin remaining a dosing calculator and reports that you and your physician can use while you're trying to decide what your next step is. Well, well well, it's not just an insulin pen, now is in Penn today.com. That's where you're going to find out more information and get started. If you're ready to try the M pen, just fill out the form at M pen today.com or do some more reading. There's actually some videos you could check out too about the dosing calculator, the dose reminders, carb counting support, and the digital logbook. So if you want to lighten your diabetes management load, but you're not ready for an insulin pump in Penn is probably right for you in Penn today.com. In Penn also offers 24 hour Technical Support hands on product training and online educational resources. And here's something else that you'll find it in Penn today.com It is actually very exciting. Now this offer is for people with commercial insurance in terms and conditions do apply. But you may pay as little as $35 for the pen. And that's because Medtronic diabetes does not want cost to be a roadblock to you getting the therapy you need within pen $35 How crazy is that? In pen today.com in pen requires a prescription and settings from your healthcare provider. You must use proper settings and follow the instructions as directed. Or you can experience high or low glucose levels. For more safety information where to get started today, you can go to in Penn today.com What's next, Jenny? Hey, we're back with the ball beginnings series. And we're going to talk about something today. That's going to happen to everybody I hope exercise, but we're not gonna dig super deep into it. We just want to make sure that newly diagnosed people understand the impacts.
Jennifer Smith, CDE 4:20
Right? Absolutely. They think it's a neglected topic. At that initial like diagnosis and the overwhelmingness of everything that you're trying to learn about. Exercise is like way, way at the bottom and what to expect to try to learn right and also,
Scott Benner 4:40
I also think that when people think of exercise, they think of at 11 o'clock I'm gonna go to the gym and I'm gonna run on the treadmill and I'm gonna lift these things then I'm going to do this I'm gonna go back but exercise could be cleaning the house or cutting your lawn or your kid going to a store. Yeah, walking around it whatever. Do we say Walmart in the variable series? Yeah. So yeah, shopping, anything that takes your, your level of activity from where it kind of normally is to an elevated place because your settings for your insulin are usually set up for when you're sitting in school or at work or sleeping or whatever. And then, let's just explain. I'm going to ask you to do it. What happens when there's two kinds of exercise? Look at me, anaerobic, and your aerobic. What is
Jennifer Smith, CDE 5:39
it and the other one? You're so funny. Oh, my goodness.
Scott Benner 5:42
I made weightlifting like sign like movement.
Jennifer Smith, CDE 5:45
Yeah. Anaerobic. Yes, like resistance and weight training. In which you're not increasing or not for long periods, increasing your heart rate, right. And then there's cardio kind of exercise or aerobic where you're using oxygen at an increased rate, right. And they both do something different to your blood sugar
Scott Benner 6:07
or could Alright, so anaerobic like from my childhood, Lou Ferrigno, lifting weight. There you go, and aerobic. What's her name? married to the guy from CNN. Oh, yeah. Oh, my God, famous actress. Did that thing in Vietnam? People didn't want that. There you go. There you go. I knew how was it possible? I could, I could give you her entire litany of what she did throughout her life couldn't think of her name. That's ridiculous.
Jennifer Smith, CDE 6:38
I actually am very, very proud. Because my husband is like the trivia man. He knows. Like, he knows. He can look at somebody be like, he did this. And he did this. And this is his name. And like the song that I I'm like, I know the song. I tell you all the words and the group is hmm, I don't know who the singer is.
Scott Benner 6:57
I'm worried that I didn't go to Olivia Newton. John. I was just trying to think of like people who used to make VHS tapes of them working out in leotard. So you would work out in your living room. But but so the point is, is that you're there's two different kinds of exercises you might get involved in. And they have two different impacts. Is that correct? Yes. Okay. So aerobic exercise may make my blood sugar drop down. Yes. And weightlifting and resistance stuff could make my blood sugar go up? Correct. Okay.
Jennifer Smith, CDE 7:30
In fact, the anaerobic or the weightlifting resistance. The heavier the load, the more that you're doing in that is more of an adrenaline kind of released, right? It's the more pumping kind of and so that can be the reason it's causing a rise in blood sugar. And the others, typically, aerobic, whether it's running or jumping on the trampoline, and a trampoline and the past couple of years. I've heard more comments about trampoline, blood sugar than any other sport for kids.
Scott Benner 8:07
I think they cuz I think it's the, it's kind of what I was bringing up at the beginning. Like your kid is like eight. And they're like running, you know, sitting down watching TV, and then all of a sudden, they look up like a puppy that saw something, jump on the trampoline now. And then they run outside and do that. And you're like, Wait, stop.
Jennifer Smith, CDE 8:27
We just hit they're all shiny dangly objects. That's what it is. They're they're here, you they look content. And then they're like, Oh, look at all it is. It's like a puppy. It's like it, there's a squirrel over there. So there's
Scott Benner 8:39
these two situations, you might fall in one, you know that soccer practice is at six o'clock. And you can prepare for it in one way and to have your kids start chasing each other around the house and run up and down the stairs 75 times 45 minutes after they ate with a bunch of active insulin inside and your blood sugar tax. Right, right. So no one tells you about that when you're diagnosed with diabetes.
Jennifer Smith, CDE 9:03
No, not at all. And if you are, again, in the kid category, or even the teen category, and teens are very much in that sedentary might move up, somebody comes over. It's the same really. And so you have to consider those really, like quick spurts of activity could be lengthy. They could be 10 minutes and your kid is done. And they're like, I want to sit down and read a book again. Right? So paying attention in those times, can give you like future vision then to what to maybe do. But it's it's all learning. Really. It's it's paying attention. It's not going to be perfect. Don't expect it to be perfect. Know that you have the tools to manage and some idea that if something's planned, you can try to accommodate and see how it works out. If something's unplanned, one of the best things is just making sure you got some carbs to manage. Because that's all you can do to fix it.
Scott Benner 10:07
Yeah, I. So kind of the way I think about it is, you ever see those beach houses up on the stilts? Okay? Those people said, I know that one day water is going to come rushing in here. And I'm gonna put my house up where the water can't get to it. And I think it's water. But I don't understand how to say. So that's fine. It's pre planning, right? Yes, somebody else built their house in the ground, the water comes rushing into the house goes back out into the ocean. They're like, I don't know what happened. What happened? You didn't plan very well. So the way I see all this is not that Arden doesn't have fluctuations around exercise if she's not prepared for it. But rock solid settings, and rock solid understanding of how to Bolus for meals so that you don't end up with a lot of insulin. In the body. It's not accounted for correctly for need. So if if Arden does not prepare to like, go downstairs and get on the treadmill and run she will get low? Absolutely, absolutely. Well to Yeah, but she'll get low like 66. And then she'll need something and it'll bring her blood sugar back up. She doesn't go from like 95 to 20. Like it's not like some crazy drop, because she won't go running when she's got meal insulin active, because she knows better at this point. Right? Right, because that's going to make her blood sugar low. So I think most of activity is not having active insulin, or cutting your Basal, if you're on a pump in a way prior to the activity, where you kind of create one of those black holes so that the drop, can't drop, because there's nothing there to pull it down, because we call it a drop. But it's not really a blood sugar drop in this scenario. It's a poll. But that doesn't make any sense, right? Well, I
Jennifer Smith, CDE 12:01
think what I've seen in a timeframe, which might make sense for again, more newly diagnosed is the common time period when you haven't accommodated before more spontaneous exercise. Whether it's insulin or extra food, or however you're going to do it, if you haven't accommodated 15 to 20 minutes into movement, that aerobic is a drop zone, and again, not dropped, like over a cliff, it's you might have been floating along pretty stable. And it's definitely going to start nudging down, right. Yeah. So that's a timeframe at least that may give a little bit of reference to people who are new to trying to figure out what to watch for,
Scott Benner 12:44
right. And I think if you find yourself in a scenario where blood sugars are dropping and rising, and you don't understand why you're going to be more susceptible to a problem during exercise as well, right? It just really did strike me as I just said that. Calling a blood sugar drop a drop makes it feel surprising, the word usage makes it feel like it's unknowable, it just happened, it just dropped out of nowhere, like those are the phrases people use. But that's not really the case. In most situations, it's you have some active insulin, it's, it's taking sugar out of your blood, your blood sugar number is falling because of that, then suddenly you start exercising. And there it is. I mean, I would think that if you made me just give one piece of advice, I'd say do not exercise, aerobic ly with active insulin on board.
Jennifer Smith, CDE 13:37
And if you do know how much carb you may need to cover, the active insulin that's there with, again, spontaneous activity and whatnot in kids is pretty much the whole day, I would say to what you can play on in schools and that kind of thing. But if it's spontaneous, and you've got active insulin, because you didn't plan to go out and jump on the trampoline with four friends after lunch, you got this insulin, it's going to need some additional food beyond what it was given to cover. Yeah, because the exercise is mobilizing that insulin faster
Scott Benner 14:09
and not just in a situation where you unexpectedly find yourself doing something but what happens when you eat dinner and then go to baseball practice. Right, right. Like that's what here's a plan. Yeah, there you go. You can also you have to sort of understand Jenny mentioned adrenaline a little while ago. Baseball is a good example. Because it's not a ton of running around for the most part, right? But people will say how come my kids blood sugar gets high in a baseball game, but not at a baseball practice. And it could just be because there's no competition at the practice. They don't feel a sense of competition. So there's no adrenaline rise. These things take time to figure out honestly do but I and I'm not just self promoting here. But if you listen to the Pro Tip series, that should teach you how to keep things more stable. And then you should have an easier time being able to see what's going on in these situations so that you can adapt to them. Absolutely. Some stuff from people here, how do I adapt existing routines and lifestyles for diabetes, like swimming, summer camping, hiking, that's what we're talking about. It might be what you're eating, you might eat something with more protein in it more fat in it to hold your blood sugar up longer. You may do Temp Basal decreases before activity to help that, again, all that's in those episodes. But I just think it's important for people who are newly diagnosed to understand that it's going to happen because people don't tell you that and no, then there you go. Right. So
Jennifer Smith, CDE 15:48
and then it's scary. It becomes scary, because nobody told you to expect that this activity that your kid loves to do, but it's sporadic is going to do this versus this.
Scott Benner 15:59
And you see this this feedback from the person said, My son was in baseball and swimming, when he was first diagnosed, the doctor flat out told me he would have to rethink the sports he was playing. And that crazy for things that would work around his diabetes. While we were learning how to manage the disease. I was led to believe he could not live a normal life with sports. Oh, but of course, he
Jennifer Smith, CDE 16:23
could oh my gosh, I'm, I feel so bad that they were told that Yeah, that's really
Scott Benner 16:29
terrible. It really is. Meanwhile, the tight end for the Ravens has type one diabetes, and you have type one diabetes, and you run for some reason I don't understand why. And it's so to a lot of other people right there professional has been professional baseball players on this podcast, who have type one, it is very doable. But you need to, you need to do the things you need to do that you you have to have your basil, right, you have to understand how to Bolus from meals, you have to understand the impacts of different foods. And now you have to add understanding how to keep active insulin away from certain activities. Or you if you become a bodybuilder, you might find yourself bolusing before you workout,
Jennifer Smith, CDE 17:15
correct, absolutely anaerobic exercise, can for many people, not always, but it can depending on the length and the weight. And you know, all of that it can drive blood sugar's up again, when it's going to be based on on your response, it could be that you start out in a really great place. And by the end of your lifting session, you're riding high or you're kind of nudging up, essentially. But overall, you have to just pay attention to you. Some of the lifters that I've worked with have taken a Bolus at the beginning of lifting session to accommodate and avoid and avoid arise. Some of them have set a temporary basil to accommodate for that. Some of them end up doing a little bit of both anaerobic and aerobic exercise, knowing that their blood sugar is going to get driven up by weights, they end up allowing that drift to happen to a certain point, and then following it with aerobic exercise, which they know is going to navigate it down and tends to kind of smooth things a little bit more on the back end rather than a dramatic drop, like we often see with cardio. Yeah. So
Scott Benner 18:24
you also have to, you know, when we talk about mixed meals, right, like it's easy to pick one food and Bolus four. But what do you do when you're having meatloaf and mashed potatoes and applesauce and these all have different impacts. Also, you could head out into the backyard to move a pile of rocks, which you would think well that's lifting except what if the pile of rocks is 45 feet from so now you're lifting and then you're walking, right and then you're lifting and you're walking, you're you're having two different impacts, you could end up doing something like that in the backyard for example, and it not looking on your blood sugar like anything happen, because you could be getting a pull down from the aerobic and a push up from the anaerobic and this all you know what I always say the podcast makes things seem simple, but Jesus. But it's very doable. And I think that's the important thing. But everything starts, in my opinion with understanding how insulin works, like with Absolutely. Well thank you very much. I appreciate course, always I'll talk to you soon.
A huge thank you to Jenny Smith for being here with me again today. And I'd like to remind you that you can hire Jenny integrated diabetes.com. I'd also like to thank Ian pen from Medtronic diabetes. If you're looking for an insulin pen that does more, you're looking for the in pen in pen today.com In a few moments, I'll tell you a lot about the show, but one of the things I'll tell you is how to find the series. So if you've just stumbled upon this one, and you'd like to find the rest, there's a way to do that. And I'll be telling you about it in just a second.
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Test your knowledge of episode 755
1. How does physical activity impact blood sugar levels?
2. How should insulin doses be adjusted based on physical activity?
3. Which types of exercises are beneficial for diabetes management?
4. How should one prepare for exercise to avoid blood sugar fluctuations?
5. What is the role of consistent physical activity in long-term diabetes management?
6. How should blood sugar levels be monitored in relation to exercise?
7. How should low blood sugar episodes during exercise be handled?
8. What are the benefits of incorporating different types of physical activities, such as aerobic and anaerobic exercises?
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