#1869 F Around and Find Out
Nurse practitioner Christine lived with Type 1 diabetes for over twenty years before realizing her early medical advice was flawed. She discusses unlearning bad habits, pregnancy, and lowering her A1C.
Key Takeaways
- Jordan was diagnosed with Type 1 diabetes at 25 after ignoring months of severe symptoms, including a 40-pound weight loss, extreme fatigue, and excessive urination.
- A trip to the dentist for oral lesions (lichen planus) was an early warning sign of a potential autoimmune issue before his official diagnosis.
- Despite his age, Jordan's primary care doctor quickly suspected Type 1 diabetes, promptly ordering GAD-65, c-peptide, and zinc transporter antibody tests.
- Jordan is currently experiencing a slow-onset "honeymoon phase," requiring only a small basal insulin dose and frequently experiencing lows due to intense exercise and rebounding beta cell function.
- Basic health maintenance, such as taking vitamins and digestive enzymes, can be crucial for overall well-being and managing the systemic inflammation often associated with chronic conditions.
Resources Mentioned
Introduction and Sponsors
Scott BennerWelcome back, friends, to another episode of the Juice Box podcast.
JordonHello.
My name is Jordan.
I am from Maryland, and I have type one diabetes.
I was diagnosed close to a year ago.
I am about to turn 26 years old.
Scott BennerIf you're looking for community around type one diabetes, check out the Juice Box Podcast private Facebook group.
Juice Box Podcast, type one diabetes.
But everybody is welcome.
Type one, type two, gestational, loved ones, it doesn't matter to me.
If you're impacted by diabetes and you're looking for support, comfort, or community, check out Juice Box podcast, type one diabetes on Facebook.
Scott BennerIf you're living with type one diabetes, the After Dark collection from the Juice Box podcast is the only place to hear the stories that no one else talks about.
From drugs to depression, self harm, trauma, addiction, and so much more.
Go to juiceboxpodcast.com, up in the menu, and click on after dark.
There, you'll see a full list of all of the after dark episodes.
Nothing you hear on the juice box podcast should be considered advice, medical or otherwise.
Scott BennerAlways consult a physician before making any changes to your health care plan.
This episode of the juice box podcast is brought to you by my favorite diabetes organization, touched by type one.
Please take a moment to learn more about them at touchedbytype1.org on Facebook and Instagram.
Touchedbytype1.org.
Check out their many programs, their annual conference, awareness campaign, their d box program, dancing for diabetes.
Scott BennerThey have a dance program for local kids, a golf night, and so much more.
Touchedbytype1.org.
You're looking to help or you wanna see people helping people with type one, you want touched by type1.org.
Today's episode is also sponsored by the Tandem Mobi system with Control IQ plus technology.
If you are looking for the only system with auto bolus, multiple wear options, and full control from your personal iPhone, you're looking for Tandem's newest pump and algorithm.
Scott BennerUse my link to support the podcast, tandemdiabetes.com/juicebox.
Check it out.
The podcast is also sponsored today by the Eversense three sixty five, the one year wear CGM.
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A Slow and Ignored Onset
JordonHello.
My name is Jordan.
I am from Maryland, and I have type one diabetes.
I was diagnosed close to a year ago.
I am about to turn 26 years old.
Scott BennerOh, well, about to be happy birthday.
Good for you.
JordonThank you.
Thank you.
Scott BennerMaryland, the state that connects easily to Pennsylvania, no one realizes it.
JordonThat's right.
Yeah.
Mhmm.
Sometimes it, depending on how far into Pennsylvania, it could be, like, an hour drive or a four hour drive to get there, though.
Scott BennerYeah.
My son went to college in Central PA.
JordonAnd Oh, really?
Scott BennerYeah.
And he had he's a friend that lives in Maryland, his parents would show up at baseball games, and I'd always be like, how long did it take you to get here?
And they were like, oh, forty five minutes?
And I was like, wait.
What?
Scott BennerLong.
Yeah.
That's okay.
JordonThat's kinda bizarre.
Scott BennerI kinda don't understand the map, Jordan.
That's all.
JordonBut, yeah, me neither.
Scott BennerWhat precipitated this diabetes thing?
Was anything going on?
Was your health weird, or did it come on all at once?
What was the process?
JordonTruthfully, Scott, do not know.
I used to think that I was super in touch with my health.
Truth be told, I just kinda got sick December 2024, and then it was like I I never knew if I was gonna wake up in the morning and feel perfectly fine or feel like death.
Mhmm.
And it took me a good six months before I went in to the doctor, and I I just went in for a physical.
JordonI wasn't even prepared to to be like, hey.
I've been feeling ill for a little while.
I just thought, you know, we'll see how things go.
Scott BennerWere you, like, 24, 25 years old at that point?
JordonYeah.
So I just I had just turned 25 when I got diagnosed.
Scott BennerAny health issues throughout your life prior to that?
JordonAsthma, allergies.
That's pretty much it.
Just the asthma and allergy.
Scott BennerNothing that makes you predisposed to just accept not feeling well randomly for no reason?
JordonCorrect.
Yeah.
Yeah.
Nothing like that.
Scott BennerWhy'd you do that then?
Think I I know we've been talking for two minutes, but, like, think on that for a second.
Like, how come you felt so horrible periodically and were just like, I
Jordonhave never been, like, perfect in terms of of, you know, eating well, exercise you know, like, I'll I'll eat a crappy meal with my friends kinda frequently, you know, interspersed with my healthy meals and stuff like that.
So I kinda figured, like, hey.
Maybe I'm I'm just so inconsistent with my health that, you know, I'm just some days, I wake up feeling crappy, and sometimes I feel good.
Scott BennerThis is what it feels like when your body's processing a half a pizza and a bag of Doritos.
JordonExactly.
Scott BennerI see.
And are you living at home or alone by then?
JordonI, live at home.
Scott BennerOkay.
So so so you there are people around.
Like, you could turn to your mom and say, I don't feel good, but you just kinda don't do that.
JordonYeah.
Unless it was, like, really taking its toll on me unless, you know, I was staying in bed for five hours longer than I usually did, then she you know, it would be obvious to everyone else, but I I just didn't really mention it.
Scott BennerAnd that was happening sometimes?
Get up in the morning, you're like, I can't I can't function?
JordonThat happened more frequently, towards the diagnosis.
So, just for reference, I usually wake up around seven in the morning.
There were a couple mornings that I woke up at eleven or noon.
It just it didn't make sense to me, and that was worrisome.
I was like, what the hell is you know?
Scott BennerOh, wow.
Like, you'd open your eyes and think, how is it possibly 11AM something's wrong?
JordonYeah.
There was one morning I think I woke up at, like, nine, and I was I couldn't move my body.
And so I was like, maybe I just need an extra thirty minutes to sleep, and then I woke up at one in the afternoon.
Scott BennerBecause you know how frequently people wake up and can't move.
JordonHonestly, though, that had never happened to me.
Scott BennerYeah.
That's why I should have panicked you.
Jordan, what's Why is everyone not as worried about themselves as I am?
I wake up and I have that feeling.
I immediately I'm screaming.
Scott BennerSo what?
Everybody here shot.
JordonYou know?
Scott BennerI need help.
Yeah.
Yeah.
Well I Okay.
How long does this go on for, Jordan, before you, like, you speak up or do something?
JordonI would say probably, like, two months.
Like, from my birthday in springtime to I was diagnosed in June.
So, yeah, a couple months.
Scott BennerWow.
JordonBut I think from the first sorry.
I don't I don't wanna be gross or too specific here.
But
Scott BennerNo.
Definitely be gross and too specific.
JordonGo ahead.
In December so I was diagnosed in June 25.
In December 24, I went over to a friend's house, and we were just hanging out for most of the day.
And it was Christmas time, so they had those, like, Godiva snowmen or whatever it is.
Mhmm.
JordonAnd I was, like, I was housing on the sky.
Like, I ate enough to kill a baby elephant and went home later that night, and I threw up for probably, like, five hours.
I was going to the bathroom, like, every ten minutes maybe.
Scott BennerJordan, what what they call, coming out of both ends?
JordonNo.
No?
No.
Nothing was
Scott Bennerwere peeing and throwing up?
JordonI was just throwing up.
Scott BennerOh, you say oh, going to the bathroom.
I thought you meant when you say going to bathroom.
JordonI'm sorry.
Scott BennerNo.
Don't be sorry.
That's me.
I thought you meant
JordonI made it to the bathroom.
That's why I added it in the story.
Scott BennerThe vomit.
Okay.
JordonYeah.
People give you a,
Scott Bennerlike, side eye because those things are kind of expensive, those little chocolates where they're like, what's up with him?
You you know what I mean?
JordonYes.
But I have always I've always been the kind of guy that, like, if I'm hungry, I'm gonna eat all the food and I don't really care.
Scott BennerAnybody thinks about it?
Yeah.
Yeah.
I mean, DKA.
Right?
Scott BennerNo.
No?
Okay.
Go on.
What happened?
JordonThis was this was six months before I went to the doctor.
Scott BennerOh, okay.
Keep going.
JordonSo I was like, oh god.
Dying.
Called out of work for the next two days, but, honestly, I was fine.
That little bout finished up.
I woke up the next morning fine.
JordonIt was so weird.
I think I went on being okay for another few months before that, like, terrible fatigue set in.
Scott BennerYeah.
JordonAnd then I was like, okay.
Let's let's schedule
Scott BennerI go to doctor.
Yeah.
Hey.
You call out of work.
Do you say, hey.
Scott BennerI ate a bunch of, Santa Claus chocolates and threw up.
I can't come in, or you just make something
JordonScott, I'm a master at making up excuses for getting out of work.
I don't remember what I said, but they were like, oh my god, you know, please take care of yourself.
Yeah.
Scott BennerI I don't know many people are gonna have contacts for this, but the comedian, Arty Lang, used to be on the Howard Stern Show, and, there'd be there's calls of him, like, calling and saying he couldn't come in to do the show that day, he was like, hey.
I'm I'm not feeling great.
He was on heroin.
He was on heroin, by the way.
It was like he would but he would do he would do a little cough.
Scott BennerYeah.
JordonWho knows what they thought of me, but I, again, didn't care.
Scott BennerDon't make me sit back, Jordan, and think about the arty days on the Stern Show.
They were perfect.
JordonOh my god.
Scott BennerBut you have no idea what I'm talking about.
It's okay.
JordonI don't.
Scott BennerYou should Google Arty Lang's nose at some point in your life.
JordonFor it now.
Yeah.
Scott BennerYeah.
Just to see what just to see what the cocaine could do to you.
JordonRight?
Yeah.
Exactly.
Scott BennerJordan, are your parents not involved at all?
How are you just what if you just set up a physical?
JordonI've been like this since I was younger.
I always just kinda took care of business before it could get to my parents.
And then when they found out things were going okay, they were like, oh, good job, Jordan.
Scott BennerYou know?
Lot of kids?
Lot of brothers and sisters?
JordonNope.
Just me and one older brother.
Scott BennerWhat are you protecting them from?
JordonOh, god.
I don't know.
Scott BennerCome on.
Does it about seem like she can't take it?
She get upset easily?
What it's it's simple psychology.
Figure it out, Jordan.
Scott BennerWhy do you keep it from them?
JordonYes.
What you said is is pretty spot on.
Scott BennerOkay.
Alright.
JordonI just to to kind of save them from stressing out because they're both emotional people, and I'm an emotional person.
So I think it also stressed me out when my parents got concerned.
Scott BennerMakes sense.
JordonSo I was just like, let me take care of this.
And especially at 25, I was like, you know, I can I can schedule my own doctor's appointment?
Scott BennerWell, you feel like an adult, first of all.
And secondly, you're not, by the way, but you feel like an adult.
And, by the way, I think I had a kid when I was 27.
I wasn't an adult then either.
But also That's crazy.
Scott BennerYeah.
Also, you want to yeah.
I know younger people now are like, when did you have children?
That's not happening.
JordonHard to imagine.
Scott BennerYeah.
Yeah.
But you you, you know, you're like, look.
I'm old enough to take care of this.
Also, I'm a healthy person.
Scott BennerThere's nothing really wrong.
You just keep thinking it's gonna go away.
Right?
Right.
Correct.
Scott BennerYeah.
I gotcha.
Okay.
So you head off to the doctor.
Do they pick it up at the physical?
The Dentist and the Physical
JordonWell, you know, the in the the office, my visit with the doctor was fine.
Blood pressure was good, heart, lung, blah blah blah, all that crap.
But I oh, I forgot to mention this.
I am gonna backtrack.
Sorry.
JordonBut it it
Scott BennerGo ahead.
Don't be sorry.
JordonFills in the story nicely.
I had gone to the dentist a couple months earlier, and she found she used the word lesions, which creeped me out.
Some lesions in my mouth and said this looks like oral lichen planus.
I don't know if you've ever heard of that.
Scott BennerOkay.
JordonBut she said it can often be triggered by an autoimmune issue.
And I was like, I I don't have any autoimmune issues.
And the hygienist was like, have you been to the doctor recently?
Got your labs look good?
And I was like, well, yeah.
JordonThey looked fine three years ago.
Scott BennerThree years ago?
They
Jordonwere perfect.
That was the last time I had been to the doctor.
So I was like, you know, I was just I was panicking a little bit and just trying to still cover it up at that point.
Scott BennerIf I can I just say for dentists who are listening, the reason we don't trust you, and we should, dentists are a good first line of defense for bigger issues?
Yes.
But we don't know if you're trying to upsell us some peroxide trays or if there's really a problem.
You understand?
JordonSeriously.
Yeah.
Scott BennerYou seem like a Charlton once in a while, dentist.
Try not to don't be so thirsty with the money all the time, and maybe we'd listen to you when you said there was
Jordona problem.
I don't trust you.
Scott BennerMhmm.
I know.
I know.
Go ahead.
JordonSo yeah.
But because at first, was like, oh, this could be precancerous and blah blah blah blah blah, and then she came up with the autoimmune thing, which also didn't make sense to me because I'm like, why would I have mouth cancer or an autoimmune issue?
Scott BennerDo you have any context for what autoimmune means when she's saying that?
JordonNo.
Scott BennerOkay.
JordonNot none whatsoever.
And, so I figured this was in about April, I think.
So two months before my diagnosis, and that's when I set up my physical because I was like, okay.
It's, you know, probably best to see.
So I mentioned into this.
JordonYeah.
Why not?
What the hell?
Scott BennerJust in case my lesion is mouth cancer, why don't I maybe take a looky loo and see what happens?
Right.
Right.
What's your expectation going to that doctor?
Are you thinking, like, there's nothing wrong, or do you are you worried something's really up?
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JordonOh, I'm absolutely thinking nothing's wrong.
Even though I'm sleeping until noon, have lesions in my mouth, and yeah.
Yes.
And by the way, I've lost 40 pounds.
And yeah.
Scott BennerI think this podcast is just a look into all of your stupidity and anxiety.
Not you, Jordan.
Everybody everybody listening.
I love I love these first of all, I'm glad you're alive.
But, like Thank you.
Scott BennerYou know, like, listening back in con like, you know, with some context in hindsight.
Mhmm.
Really, like, I everyone's listening going like, oh my god.
What a dumbass.
Why didn't he go to the doctor?
Scott BennerBut you all do the same thing.
So yeah.
I'm the only one who screams the minute something's wrong.
JordonYeah.
Yeah.
And so I well, I had lost all that weight, but I also began working as a personal trainer shortly before that point, and I started rock climbing, like, pretty intensely.
So I was doing all this crap, and I figured, hey.
Maybe maybe all of this is because I'm I'm overtraining a little bit anyway.
Scott BennerCan I interject one more time?
I'm sorry.
I know I'm choppy up here, but but, like, I want everyone to listen to what just got said there.
Jordan, 25 years old, has turned into a personal trainer.
You're out there giving him your money.
Scott BennerHe can't figure out what's
Jordonhow to take care of myself.
Scott BennerHe can't take care of himself, and you're paying him to help you take care.
Just open up chatty p t and ask it for a workout plan.
Okay?
I'm sorry Jordan's out of business now, but, like
JordonDo it.
Scott BennerStop thinking everybody knows something.
You shouldn't trust me.
I don't know what you're doing right now.
Like No.
Go ahead.
Scott BennerGo ahead.
Sorry.
JordonOh, but yeah.
That was that was pretty shameful moment for me.
So I'm in the doctor.
I got the blood drawn, and I walked out.
It's springtime.
Diagnosis and the A1C Shock
JordonIt's beautiful outside, Scott.
And I left the doctor.
I was like, I am so healthy.
You know?
I'm feeling great.
JordonI just, just went to the doctor.
I'm a big boy now doing that by myself.
And, so the lab results start coming in later that afternoon.
And it's like, oh, that looks good.
Electrolytes were a little bit off, but nothing crazy.
JordonAnd then the, whatever it's called, metabolic panel comes in, and it's like, good.
Good.
Good.
Good.
And then glucose is three fifty seven.
JordonAnd I was like, oh, well, that's, you know, that's a bit high.
Scott BennerSeems wrong.
Could be feeding those lesions, maybe, all that sugar.
JordonI was like, maybe.
I I came up with everything, every excuse, and I was in the car with two friends at the time.
And one of them is is very smart, still love her, but at this point in time, I was I was ready to jump back and strangle her.
But she was like, oh, you know, like, if you're if you eat late at night, you know, maybe your food wasn't didn't have time to digest, and so you have and I was like, yeah.
But it's 03:57.
JordonThat's pretty
Scott BennerShut up, Patty.
You don't know what you're talking about.
JordonYeah.
I was like I don't know.
I I was, like, shivering, I swear.
And my friends were just kinda like, what's wrong with you?
And then I went home and told my mom, and she just looked at me, like because my mom is she spent a lot of time working in the center for biologics, and, you know, she's she's familiar with, like, islet cell transfers.
JordonSo she knew all about diabetes and all that stuff before I did, I guess.
She her face was not very comforting, just to say the least.
Scott BennerYeah.
JordonAnd so I was like, okay.
It's fine.
You know, we'll wait for more.
And then the a one c came in, and I almost passed out because it was fourteen point five.
Scott BennerWow.
JordonAnd I was just kinda like, okay.
So I guess
Scott BennerI have diabetes.
JordonThat's that's something Yeah.
Scott BennerConnected there?
Do you say I have diabetes when you see the a one c?
JordonI think I knew, but verbally, I was not acknowledging it.
I knew, but I was still trying to, I think it goes back to, like, not wanting to, you know, have everyone be concerned and stuff.
Scott BennerYou all think backwards.
Can I just say can if you put me in this exact situation, here's what happens to me?
I have something I I get a little bit of, what they call information.
Then and then if it's enough to actually be concerned about, which is where you are, then I deep I deep dive it, and I make sure I understand all the possibilities, whether they're uncomfortable or not.
And then I wait to get the rest of the information so that when the rest of the information comes, I can apply what I've learned to the info the new information I have and come to a reasonable conclusion.
Scott BennerThen whatever that conclusion is, we move forward.
JordonWell, listen, Scott.
Scott BennerYeah.
JordonCongrats on being level headed, but some of us, when we do a deep dive, get even more crazy and anxious and paranoid.
Scott BennerThat doesn't happen to me.
I just got because I think I've been through so much.
I'm expect something terrible to happen.
I'm okay.
I just wanna I just wanna know, like, what am I supposed to do when that occurs.
Scott BennerYeah.
And then if it doesn't occur, it's like winning the lottery.
JordonYeah.
Scott BennerYeah.
Like, everybody's like, oh, I I found a lump.
I didn't wanna get I didn't wanna get it looked at.
Get it looked at.
It's probably nothing, and you're gonna feel like you won.
Scott BennerLike and if it and if it is something, maybe it saves your life.
Yeah.
Little bit of bad news
Jordonhappening here.
Scott BennerLittle bit of bad news, lot of good news afterwards.
And Yeah.
Sure some people die.
But, like, if that's me, I also I I also won't care because I'll be dead.
Do you understand how it's so simple.
Scott BennerI can't explain the world to you people every day.
Okay?
This is very, simple.
That's all.
You're either gonna live or you're
Jordongonna gonna say something like this to me when I talk.
Scott BennerOh, Jordan, you're a listener.
That's nice.
I appreciate your support.
JordonI am yeah.
Yeah.
Scott BennerOkay.
Yeah.
It's very simple.
You're either gonna live or you're gonna die.
If you're gonna live, do it as well as you can.
Scott BennerAnd if you're gonna die, it doesn't matter.
Do you understand?
You'll be dead.
JordonYeah.
Scott BennerYou know who's not worried about how they feel right now?
Benjamin Franklin.
JordonDead.
Dead.
Scott BennerYeah.
Yeah.
He couldn't possibly care less nor would he be able to if he could.
Do you understand?
He's gone.
JordonVery true.
Scott BennerI can't anymore, Jordan.
That's it.
This is the last it's the last episode.
I can't do it anymore.
Okay?
Scott BennerIt's all so simple.
The one that ended the podcast.
No, Jordan.
It's everybody together.
It just it came together cumulatively, and this is where it exploded.
Scott BennerI just can't alright.
Alright.
Fine.
I'll stop.
Let me relax.
Scott BennerHold on a second.
Let's put an ad here.
JordonLet's do it.
Yeah.
Okay.
What do you
Scott Bennerthink it'll be?
US med?
Omnipod?
Who knows?
JordonWe'll find out.
Scott BennerWe'll find out in a second.
Okay.
Go ahead.
I'm sorry.
Continue on.
Scott BennerI'm gonna stop.
But I get no.
No.
I felt like I pulled a soapbox out.
I didn't mean to do that.
Scott BennerGo ahead.
JordonNot at all.
So got yeah.
A one c came back, and it was ridiculous.
And so I just had to wait because the doctor was out for the day.
It was, you know, after 05:00 at that point, she'd gone home.
JordonMhmm.
So I I wasn't expecting it, but I I got a call at, like, 09:00 in the morning, and she was like, are you okay?
Like
Scott BennerThe are you okay call?
JordonYeah.
Are you feeling okay?
Because it looks like you have diabetes.
And she asked she then asked me all of the, like, have you been eating a lot more sugar in the last three months?
Have you been well and I was like, yes.
JordonI don't know.
Because at that point, I'm like Yeah.
My god.
I gave myself diabetes because I have
Scott Bennerso that Santa Claus'?
JordonExactly.
Scott BennerYeah.
JordonSo I said yes even though it wasn't really true.
I mean, I I eat really well.
Mhmm.
I asked her, like, what type is this?
And she was like, I I have no clue.
JordonWe're gonna do some more testing.
And see this, I've listened to, you know, a million episodes of the podcast and have heard about how people's doctors have treated them, you know, especially, like, young adults being diagnosed and initially misdiagnosed.
Scott BennerYeah.
JordonBut that man, this woman, she put in the GAD, 65 Right away.
Immediately.
Scott BennerGood for you.
JordonSo I I went in that after that phone call the next morning, got another blood draw in my, I think I was at, like, two seventy five fasting.
Mhmm.
And I had probably been not eating, you know, ever since seeing those numbers, and so two seventy five was high.
Scott BennerTwo questions.
How did you know to ask what type it was?
JordonBecause something just didn't seem right.
I mean, I, you know, I went to to school for nutrition science.
You know?
I took anatomy, physio blah blah blah.
And I was just kinda like, I'm 25 years old.
JordonI am at a normal weight.
I eat pretty well, and I'm I'm ridiculously active.
So, like It would be
Scott Bennerodd if I had type two diabetes.
Yeah.
Okay.
JordonYeah.
Even even though I'm not perfect with my diet.
Scott BennerMhmm.
Okay.
JordonI have two friends with type one.
Scott BennerOh, okay.
JordonSo I was Well, that's helpful.
I I I'm I'm aware of type one even though I I I didn't know too much
Scott Bennerabout it.
You all don't live on the same street next to a toxic waste dump or something like that, do you?
JordonHey.
We live pretty damn close, so there might be something there.
Scott BennerNo kidding.
Okay.
Keep going.
JordonYeah.
So she she told me we would do some testing, and the GAD it came back.
I think the reference value was, like, normal is less than five international units or something, and mine was, like, 15.
So I was like, oh, so that's positive.
They said it's kind of, like, on the low end of positive, but still.
JordonYou know?
Scott BennerMhmm.
JordonAnd then they tested c peptide, which was also, like, just under normal, the low end of normal, and that was after eating.
And then they did the zinc transporter antibody.
Yep.
And that one was also positive, but on the low end.
So I that kind of all made sense with the fact that I was not in DKA yet.
Scott BennerYeah.
The slower the slower diagnosis that was happening to you.
JordonYes.
Yeah.
Let me just say again, I I wanna give a lot of credit too, but this was my primary care.
Scott BennerWow.
Wow.
JordonYeah.
Young lady, which I think had a lot to do with it, she just put all that in right away, got me on insulin right away.
Scott BennerYou think because she was young, she's motivated to do a good job.
She's still interested in in her work, that kind of thing.
Is that what you're saying?
JordonCorrect.
Yeah.
Because she left, actually, I was very upset because I got an email saying that she was no longer with Kaiser.
And I don't know if it doesn't matter if I say that out loud.
But No.
JordonAnyway so I had to choose a new one, and I chose an older man who we talked about the fact that it was type one.
Yes.
Antibody positive.
But I looked back at the clinical notes after my appointment, and I was so pissed off because he had written down that I needed here I am sitting in his office, a hundred and thirty pounds.
I'm, like, five nine.
JordonAnd he writes down that I need exercise counseling and diet counseling.
And, like, he's he's talking to me as if, oh, yeah.
I bet you're doing all that exercise to try to, you know, like, lower your blood sugar and keep your weight in check.
And I was like, not really.
I I lost 40 pounds without trying.
Scott BennerYeah.
Yeah.
One thirty on a five nine frame.
You must have looked like a 12 year old girl.
JordonOh my god.
Yeah.
Yeah.
Yeah.
So this was one one of the things that really made me upset, concerned before I made the doctor's appointment was I went to a baseball game with my friends, and we took a group picture.
JordonAnd I was on, like, the side, so I had to, like, lean in.
And my neck, ugh, it looked so gross.
It was, like, so skinny and long, and my face, my cheekbones were sunken in.
Scott BennerI'm five nine, Jordan.
And the last time I weighed myself, I was one seventy six, and I look thin.
Like like Yeah.
JordonYeah.
You know what I pictures of you since you've, since you've lost weight.
And I'm like, wow.
That guy's that guy's thin.
Scott BennerPhotograph well.
But, like, I'm telling you in person, like, I I look like, I look thinner.
Like and I can't imagine.
If you took 40 more pounds off of me, I'm trying to imagine what that would be like.
JordonYeah.
I go to this brewery with my friends.
We play, like, trivia and stuff there, and they have these terribly uncomfortable wooden chairs.
Scott BennerOh, yeah.
JordonAnd I started to have to get up, like, every few minutes to, quote, go to the bathroom.
But, well, I was doing that because I was peeing all the time.
Scott BennerBut your butt hurt.
JordonYeah.
My Yeah.
Hurt.
And I could see my hip bones.
I could see my my shoulder points were just yeah.
Scott BennerYeah.
Yeah.
I have trouble on a plane.
Some of the airline seats are really uncomfortable now because I my ass is gone.
Like, it just yeah.
Scott BennerI'm not even kidding.
JordonCushion.
Scott BennerYeah.
They're they're they're yeah.
No kidding.
Yeah.
Like so it it's no joke.
Scott BennerYour bones are pushing on your skin.
Yep.
Yep.
Oh, Jesus.
JordonAnd
Scott BennerLook at you.
JordonAnd that yeah.
I know.
But, you know, the funny thing that I just I gotta be honest.
I gotta mention it.
I got out of the shower one day and was like, damn, dude.
JordonLike, you have been doing a great job, you know, killing it in the gym.
Scott BennerYeah.
I am ripped.
Look at me.
JordonSo at the on the one hand, you know, cancerous lesions in my mouth and vom all that stuff.
Scott BennerBut look how thin I am.
Yeah.
Jesus.
Yeah.
Usually the way, a number of people have said that to me over the years.
Scott BennerIt's usually women.
I just want you to know.
But, like, it's, today, it's you.
I like that.
I'm like, you're like, oh, look at me.
JordonWell, I I've always been healthy, but always had a my it's funny.
My grandfather always said I had baby fat, and that always pissed me off.
Yeah.
So I was like, damn.
I'm finally, it took me until 25, but I lost my baby fat.
Family Health History and Autoimmune Links
Scott BennerIs he is he still alive?
Did you go show it off to him?
JordonHe is still alive.
And, you know, I this, kinda off topic off topic, but he was one person I thought that I would really be able to talk to about the diabetes, but he didn't even understand.
Scott BennerWhy'd you think you'd be able to talk to him about it?
JordonI don't know considering he was making, you know, asinine comments about my weight and body composition when I was a child.
But
Scott BennerGreat generation.
The greatest generation.
You know what I mean?
JordonYeah.
Seriously.
He's a a guy who fancies himself to be wise.
I can I'm trying to put it as nicely as I
Scott Bennercan.
So when you were younger, you were like, I think this guy knows something.
He tells me he knows something.
Then you went to him, you're like, you don't know anything about this.
JordonCorrect.
Scott BennerYeah.
Yeah.
He's what they call, foolish.
JordonYep.
Yeah.
Some might say.
Yeah.
Scott BennerThat's awesome.
Your dad's mom or your mom's mom?
JordonMy dad's mom.
Scott BennerThat's okay.
Okay.
Is your dad the same way, is your dad like
JordonSorry.
My dad's dad.
Scott BennerYour dad's dad?
Sorry.
Yeah.
And that was me.
I led you wrong there.
Scott BennerIs your father similar, or did he go different path from your grandfather?
JordonActually, he took a a worse path.
So my dad my dad has early onset Alzheimer's.
Oh, god.
Sorry.
Been, yeah.
JordonThank you.
That's he was diagnosed about three years ago, but the whole process has been probably about a decade long.
Scott BennerNo kidding.
How old is he now?
JordonHe is 50 about to turn 57.
Scott BennerOh, that's harsh.
I'm sorry.
JordonYeah.
But, no, my dad was not anymore
Scott BennerLearned in his time?
JordonNo.
Correct.
Scott BennerJordan's like, listen.
We're on our own.
Okay?
JordonYeah.
I can't You know, going back to it, that's another reason I I, like, I have tried to take care of stuff myself is because I'm just like, I I can't.
Scott BennerDo you think that's because don't you think everybody feels like that about their parents to some degree?
JordonProbably.
But I also know a lot of people whose parents like, I I mean, I listened to you talking about how you still you know, if if Arden needs help, you know, you're there to help.
Not that you're there all the time or your son, But it's just I don't know.
I guess everyone's a little different.
Scott BennerBut, you know, they don't see it that way.
Right?
That you listen to me and you think if my father had half on the ball, this guy does, I'd be better off.
But my kids think I'm an idiot too.
Sure.
JordonYeah.
Yeah.
Yeah.
But that's that's because they grew up with you.
That way, they're not used to it being the I I wonder if they would feel differently now that they've, like, been to college, been out of house.
JordonI mean, I'm sure they
Scott Bennerfeel surprised.
Yeah.
Well, listen.
I'm sure at some point, but I think it's part of the the natural, like, separation process.
The at some point, you have to feel like because I'm gonna go make my way in the world, and I know things.
Scott BennerAnd if you if you keep thinking, like, well, they're smarter than me.
I'll just sit here.
It's what's it?
Infanalyzing?
Is that the word?
Scott BennerI think it's a natural part of, like, leaving the nest to think that the the nest you're leaving is not as good of a situation as you could create for yourself.
JordonSure.
I there is there's some truth to that because I I you know, parents always say, like, I want you to have a better life than I did, and I think that to some extent, that's that's usually the case.
Right?
Scott BennerLike Yeah.
I mean, I tell my kids, good luck creating this life as good as I've created for you.
I don't think have to get out there and work your ass off because I've been working nineteen hours a day my whole life, so good luck.
JordonRight.
Scott BennerYeah.
JordonYeah.
Yeah.
Yeah.
I that's one thing that actually my mom my mom is super supportive, and, I mean, I've I've learned pretty much everything from her.
Scott BennerThat's awesome.
JordonShe definitely supports me in that kind of, like, go out there and and try to try to do better, you know, where you can.
And I I think it's a lot more pertaining to, like, emotions and, like, just well-being.
Not, like, go out there and figure out how your career is gonna blah blah blah, this and that.
Mhmm.
It's generally more like how can you create, like, a fulfilling life for yourself, take care of yourself.
Scott BennerWell, that's
Jordonthat's thoughtful.
Scott BennerI bet you her perspective is probably growing significantly since your dad's issues too.
JordonAbsolutely.
Because, I mean, I'll be blunt.
He's not an easy man and never has been to be around.
Scott BennerAnd now it's harder.
JordonIt's worse now.
Scott BennerYeah.
Yeah.
JordonIt's funny because my mom's told me some people say that, like, their, you know, their parent or grandparent, whatever, was a nightmare, and then the disease hit, they became so sweet and blah blah blah.
And I'm just like
Scott BennerHe doubled down.
For you.
Yeah.
My dad doubled down when he got it.
That's terrible.
Scott BennerJeez.
That's horrible.
Yeah.
Ugh.
Well, hey.
Scott BennerAre there other autoimmune issues in your family?
JordonSee, I knew this was coming, and I was really excited for
Scott Bennerit.
Go ahead.
JordonMy mom's brother has RA and hypothyroidism.
Scott BennerMhmm.
JordonAnd their uncle my mom's uncle passed away from MS.
They had another uncle who had diabetes that was so severe, he lost now this was supposedly type two, but I have some speculation about it.
He lost both feet and died at, like, you know, way too early.
And since my diagnosis, my mom had lunch with a cousin, and her cousin was like, oh, yeah.
I have Crohn's, and my daughter has type one.
JordonSo I was like, oh, okay.
So this goes like
Scott BennerYeah.
It's a lot.
Have you considered getting the hell out of Maryland?
What's going on?
JordonSeriously.
Oh, yes.
Absolutely.
Scott BennerCould be the marshes.
There are marshes there
Jordonon here.
Yeah.
Yeah.
Yeah.
The nasty soggy air.
Scott BennerAnd what is your what's your dad's diagnosis?
JordonEarly onset Alzheimer's.
Scott BennerJust that.
That's it.
Okay.
JordonYeah.
So no autoimmune from that side of the family.
A lot of type two, but, of course, everyone these days has type two diabetes.
So
Scott BennerIt's just the thing to do.
Do you think you you well, that's in your do you think you know, there are plenty of people who would listen to this and go, I don't know one person has type two diabetes, I think.
JordonYou think?
Yeah.
Yeah.
Yeah.
Yeah.
JordonI've always been, maybe it's a cultural thing.
My dad is black, and we come from, like, a, I would say, a southern family.
Mhmm.
So, you know, all of those kind of comorbidities, I guess, as they say.
You know, it got the high blood pressure, high cholesterol, all that kind of stuff.
JordonSo type two is I mean, it wouldn't make sense to not have it.
Scott BennerYeah.
No.
I was talking to a a guy in his, like, late thirties yesterday.
He's of Spanish descent.
He was talking about how much type type two is in his family.
Scott BennerYeah.
Yeah.
It's Yeah.
It's something I I did a little, just a a quick Google here.
Alzheimer's not classified as an autoimmune disease.
Scott BennerIt is generally considered a neurodegenerative disease marked by brain changes such as beta amyloid plaques and Mhmm.
Tau tangles.
What is true is that immune systems seem to play a role in Alzheimer's.
The National Institute on Aging notes that inflammation and immune system problems have been linked to development of Alzheimer's and related dementias, and newer research is looking closely at immune dysfunction in the disease.
So, you know, there's a connection just you know, Alzheimer's isn't considered an autoimmune issue.
JordonRight.
I mean, I think you you mentioned it a lot, systemic inflammation.
Scott BennerJust the bad news.
JordonI mean, it may not something may not be autoimmune in nature, but you know?
Scott BennerI can't take obviously, you can't take Advil every day, okay, as an example.
But there are days if I take it, I just do feel better a little bit.
And Sure.
Like, I and I I just do wonder if I don't have, like, inflammation related issues that I maybe aren't autoimmune specifically, but you take that with me and my wife having, you know, thyroid and you mix it together and you get Arden.
You know?
Scott BennerYeah.
JordonThere you go.
She was doomed from a
Scott BennerDoomed from the start.
JordonDoomed from the start.
That's what I think sometimes.
Like, did you two not, like, look at each other's breeding papers before
Scott Benneryou know?
Your mom and your dad?
JordonYes.
I'll tell
Scott Benneryou right now.
If they were puppies, no one would have put them together.
JordonSeriously.
Seriously.
But I I think a lot of that has also come to light later.
You know, my uncle is twelve years younger than my mom.
So I think I don't remember him having those issues when I was younger.
JordonMaybe he did.
Scott BennerMhmm.
JordonAll but I know that it's kicking his ass now.
Uh-huh.
Like
Scott BennerYeah.
I'm sorry.
It's a lot of health issues.
It's it it overwhelms a overwhelms a family and a life.
You know?
JordonYeah.
But, you know, he's if you saw my uncle, this guy's, like, the healthiest looking person, positive.
He's a gym teacher.
Scott BennerYeah.
JordonYou know?
Scott BennerDo you think about that?
Do you think about maybe I'll just put a stop to it and not have kids?
JordonOh, yeah.
Scott BennerYou do think about
JordonI have no plans to have kids because I've just well, like, not just the diabetes, but, like, mental health, all of it.
Scott BennerWhat about the mental health part?
JordonI don't wanna have to have my own children that see me in that state or I mean, my my dad's parents are alive.
Scott BennerMhmm.
Wait.
What about your mental health?
Don't I understand?
JordonOh, mental health, sorry, just meaning, like, the Alzheimer's and stuff
Scott Bennerlike kind of stuff.
Okay.
JordonLike, that stuff does it does seem to run-in the family.
He's the first, I think, with early onset.
You know?
Everyone else has been old.
Scott BennerThis is also something you're worried about for yourself then?
JordonYeah.
Not like I'm not going crazy about it.
Scott BennerGood.
JordonI you know, you take care of yourself.
You do what you can.
You know, there's a lot of information out there.
See, I've changed my tune now.
I'm like, let's let's not play around.
The Honeymoon Phase and Insulin Adjustments
Scott BennerTwo years later, Jordan's a different person.
Yeah.
You you wake up five hours late.
You're calling 911.
You're like, something's wrong with me.
Scott BennerCome yeah.
Get over here right now.
JordonI need a helicopter.
Yeah.
Scott BennerMatter of fact, out of here.
JordonYeah.
Yeah.
So I I have kind of taken some of the lifestyle changes to heart that, you know, may lead to me a healthier life in preventing those issues.
But but to, what you were saying about kids, I don't I wouldn't want them to have to take care of me.
I wouldn't and I was saying, like, my dad's parents are alive, and it is really tough for them.
JordonLike, I I that would kinda break my heart too.
And Yeah.
And on top of that, I don't I haven't even we haven't gotten there yet, but I haven't progressed to full on type one yet.
You know?
I'm honeymooning.
Scott BennerOh, you are still in
Jordonthe honeymoon.
So, I can only imagine, like, having to deal with myself and someone else's diabetes.
Scott BennerJordan, you're having a very, very slow onset then.
JordonI am.
Scott BennerYeah.
How long has it been going?
A couple years, almost a year and a half?
JordonSo I was diagnosed in June, so it's been ten months.
Scott BennerI would also Just about.
I would also argue the six months prior to that.
Oh, yeah.
Yeah.
Yeah.
Scott BennerYeah.
Basically.
Six months prior to that.
Yeah.
Some something's going on there too, obviously.
Scott BennerOh, so what's it look like?
Are you are you using a pump?
Are you MDI?
What are you doing?
JordonI just do one shot.
They started me on basal immediately.
It was, like, seven units.
Scott BennerOh, okay.
JordonAnd so I went from I was testing, the like, all the time initially, and I was I went from, like, 3 hundreds to 100 to in the nineties, like, in two days.
Scott BennerMhmm.
Just with seven units of basil a day?
JordonYeah.
Scott BennerOkay.
JordonSo that it'd be and I was still confused about, like, type one, type two, but, like, from what I understand, that's it's it's a characteristic of maybe even though it went on for a long time, we kinda caught it early.
I have some some remaining beta cell function there.
Scott BennerYou have you have lot Lotta probably.
Is that what they're calling it?
JordonLot.
Yeah.
Scott BennerYeah.
JordonAnd I I asked my endo about that, and she was like, I don't care what you call it.
Just just you know?
Scott BennerYou have type one on a train that's taken forever to get in the station.
And yeah.
Yeah.
Did they mention GLP, like, low level GLP to help?
JordonShe was convinced that I would disappear if I started on a GLP and lost any weight, even if it was a microdose, I guess.
Scott BennerOkay.
JordonI don't know.
But I I asked about, god, can I say it correctly, teplizumab or whatever it is?
Scott BennerYeah.
Yeah.
Yeah.
TZL.
JordonThe yeah.
Mhmm.
The the drugs that prolong the honeymoon, and she was just I don't know.
Maybe it was the the a one c of fourteen point five that she was just kinda like, I think you're maybe a little a little too far gone.
Scott BennerShe's like, the train is going slow, but it's pretty far out of the station.
JordonIt's here.
Yeah.
Yeah.
Gotcha.
So she said just continue with that.
JordonAnd and so I was actually having a lot of lows because I exercise like crazy as well.
Yeah.
So I was just always always low.
And back in February, couple months wait.
Yeah.
JordonBasically, last month, I was like, I can't keep doing this.
I'm at, like I just had food.
I shouldn't be at 55 and, you know, arrow down.
Scott BennerSo on days when you're exercising hard, even though seven units of basal are too much?
JordonYes.
Scott BennerYeah.
It's interesting.
JordonYeah.
It's confusing to me.
Scott BennerI would be so I have to tell you, not a doctor, not advice.
I would be super interested to see what micro dosing GLPs did for you.
Yeah.
2.5 is the smallest pen I'm talking about, way less than that.
And, like Yeah.
Scott BennerJust to see what what like, if if there's a if there's a tipping point in there where it could affect your blood sugar without affecting your hunger.
JordonI would like to see that too because I I don't know.
It just doesn't I tried to stop taking insulin, which I I know you're not supposed to do, but I was really desperate here because I was I was getting scared.
Scott BennerBecause of how low you were getting?
JordonYeah.
Like, it was every day at the same time, 55 double arrow down.
Like and I didn't believe it.
I was like, I need to finger prick because
Scott BennerAnd sure enough.
JordonThis is probably wrong, and I was in the forties every time.
Scott BennerYeah.
You probably have the basal running, and all of a sudden, your pancreas is like, hey.
I can help now.
JordonYeah.
I'm here too.
I'm still going.
Yeah.
Yeah.
JordonWhich also I my c peptide rebounded after three months.
Scott BennerInteresting.
JordonIt went from being low to being normal.
They they said that's yeah.
You're honeymooning, and I was like, okay.
So I stopped taking the insulin.
Yeah.
JordonIt was February because I went to a Super Bowl party, and I had fun eating, let's just say.
And I I left the party at, like, my blood sugar was at, like, two seventy five.
And I was like, oh, yeah.
That's that's pretty high, but, you know, the basal always kicks in.
And whatever beta cell function I have left kicks in usually and brings me back down.
JordonAnd then I woke up the next morning, and I was still at two seventy five.
Scott BennerOh, and that did not work.
You didn't get that one.
Maybe it was because the Super Bowl sucked that your body didn't wanna help.
JordonRight.
It was just so upset.
Yeah.
Yeah.
But, yeah, I was like, okay.
Scott BennerNot like that beautiful Super Bowl that my Eagles put on the year before.
JordonThat's right.
Scott BennerWhere they trounced the Chiefs and made everybody in the country happy except for Kansas City.
JordonSee, I am not an Eagles fan, but I'm with you on that one.
Scott BennerIt's okay.
JordonI enjoyed that game.
Scott BennerI understand how you feel.
JordonWas a great game.
Scott BennerI understand how you people feel down there.
I know what's going on.
Don't worry.
JordonHate the Chiefs even more.
So
Scott BennerEveryone does.
And it's it's Yeah.
It's because of what's his name.
JordonOh, yeah.
What's his name is just yeah.
Yeah.
We gotta get him off, all the commercials.
Scott BennerI've never seen such a good quarterback get hurt and everybody go, okay.
I'm alright with it.
Yeah.
Yeah.
It It's his time.
Scott BennerHe's he's done he's done a thing.
He's he's made people not like him somehow.
It's interesting.
JordonYeah.
Yeah.
For sure.
Scott BennerYeah.
Talented guy.
But nevertheless yeah.
Yeah.
It's the crybaby stuff, don't you think?
JordonIt is.
That's and people don't wanna hear that after you've gotten everything you could ask.
Scott BennerOne yeah.
One did did you see in those, the betting scandals, especially around basketball?
They're talking to the referees that have been involved in it, And a lot of them are saying, like, look.
Nobody directly comes and tells you we want the Lakers to win, for example.
You know, we want we want we want this team to win.
Scott BennerWe want that team to win.
But he's he's like, you understand what's good for the league, and you make those calls, and then the league assigns you to more games.
He's like, so nobody ever asks, but it kinda gets done like that.
Yeah.
And I'm telling you that that, the year before, like, like, three Super Bowls ago, I think, one, three Super Bowls ago, you watch that AFC championship game.
Scott BennerIt feels like the ref is like, I am gonna throw this flag until the Chiefs win.
And Yeah.
Like, and it was really does.
It really does.
I mean, from an outside perspective, I I not I I had no skin in the game.
Scott BennerLike, I'm just watching it.
I'm like, man, it just feels like that guy's like, look.
If I gotta throw this flag on the ground one more time to make sure the Chiefs go to the Super Bowl, then that's what I'm gonna do.
Damn it.
JordonI'm doing it.
Scott BennerBecause Taylor Swift's boyfriend has gotta be successful.
And That's right.
JordonYeah.
Maybe everyone's just like, hey.
My daughters are really big Taylor Swift fans.
Scott BennerYeah.
Yeah.
I would love to see him.
You know, right at the Chiefs making the Super Bowl, Taylor Swift will come.
I'll bring my daughter.
Scott BennerIt'll be a whole and I don't think it's maybe conscious or not.
Like, I'm just saying, trust no one.
And
JordonNo.
Yeah.
I'm a huge conspiracy theorist, Scott.
Scott BennerI'm not at all.
I don't think that's a conspiracy.
I don't think that's a conspiracy to think that, like
JordonIt's just right in front of our faces.
Scott BennerSo feel like you understand what is expected.
You have sway over it.
You make sway.
People then like you.
You get more things.
Scott BennerLike, I you know, it just feels like feels like that's kinda how the brain works.
There's a a pleasure center you're you're feeding a little bit.
Do you wear CGM?
JordonI do.
So that's another thing.
Praise Kaiser or praise this doctor.
You know how they use the language that the medical language that no one understands, and it they don't mean anything by it, but everyone was like, Humalog, Basal, CG, and I'm just like, yeah.
Scott BennerRight.
JordonWhatever.
Fine.
And so after finger sticking, like, 50 times a day for a week, I talked to my this was when the, the GAD results came back, and she was like, yeah.
It looks like you have type one.
And she was like, have you gotten the CGM yet?
JordonAnd I was like, you mean the finger stick thing?
Like, yeah.
I have that.
I'm testing.
And she was like, no.
JordonA CGM, it, you know, goes on your arm and stay and I was like, oh, that that might be nice to have.
So I don't know.
Yeah.
This was weird because I got diagnosed over the phone, went to the pharmacy, picked up my you know, it wasn't a whole thing.
So a lot got lost in a lot of information got lost on its way to me, I guess.
JordonAnd, but, she got me on the g seven, the Dexcom g seven right away.
Podcast Impact and Final Thoughts
Scott BennerBecause you brought this up, may I just plug the website for a second?
Juiceboxpodcast.com/interactive-dd.
It's also in the menu.
You can just click on the menu at the top right.
It's interactive defining diabetes.
Scott BennerIt's, like, all the episodes from defining diabetes, but, like, broken down, like, just very simply.
JordonUh-huh.
Okay.
Scott BennerEnglish, Spanish, French, German, Hindi, a bunch of different languages if you wanna go look at it that way.
So, basically, like, I'm looking top left a one c, your ninety day big picture report card, though it doesn't show the daily roller coaster of highs and lows.
You click on it.
It says a blood test measuring average blood glucose levels over the past two to three months via glycated hemoglobin.
And then you can if you want to click off of it or click listen to episode, it'll take you to the defining diabetes episode that defines a one c.
JordonAnd Oh, crap.
Scott BennerUh-huh.
And at the top, there's a little button that says challenge.
And if you click on challenge and then you hit start, it starts asking you questions.
An early morning increase in blood glucose caused by natural counterregulatory hormones.
Dawn phenomenon, algorithm, c peptide.
Scott BennerI say Dawn phenomenon.
Yes.
And then it goes to next one, and there's this little bar that runs down.
I think it takes, like, ten seconds.
It gives you time to answer to get to the next one.
Scott BennerSo you can play, like, a quiz to learn the the definitions around diabetes.
JordonWow.
Scott, you're a digital creator if I've ever seen one.
Scott BennerI am on it.
You should see.
I just basically I just basically sit here now recording the podcast and working on the website, trying to turn the website into this great thing, which I think it is.
But now I'm about to start starting now to try to get the word out about it, and I'm gonna start with you.
So interactive dash d d if you wanna take the defining diabetes challenge or check out some terms that you might not know the definitions to.
Scott BennerThanks.
JordonThat's perfect.
Scott BennerLook at me.
JordonYeah.
I I I used my own craziness to kinda learn everything I could.
Scott BennerYou know, I tell this story constantly, but, like, the first time somebody on the podcast said, like, I don't I somebody said basil to me, I didn't know what the hell that was.
Like, you know, like, I didn't even know I was using basil insulin, but I was apparently.
And and Yeah.
If you don't have context for these words, it all be it's more difficult.
JordonSo I kept hearing the word bolus, and I was like, you mean, like, a bolus of food that, like, you swab,
Scott BennerBolus you is my bolus dirty?
No.
No.
No, honey.
It's in the sink.
Scott BennerWe already cleaned it.
Yeah.
Yeah.
Yeah.
Yeah.
Scott BennerI you people run out all the time.
I'm hungry all the time.
It's like I got diabetes.
I'm hungry all the time.
Hungry all the time.
Scott BennerGo figure out what amylin is.
There you go.
Like, they now now you have more context.
You can build bigger stories for yourself and and maybe change your pathway and understanding and get yourself to something better.
I don't wanna sound like a
JordonThat said, I had, no clue that, I think you and Jenny were talking about it that, like, the diabetes effect on your pancreas also extends to, like, hunger hormones and signaling.
And was like, oh my god.
That makes
Scott Bennerso sense.
Yeah.
Because you are a you're a hungry little monkey sometimes, aren't you?
JordonOh, yeah, man.
I'm I'm thinking about food all day long.
My god.
Let's call
Scott Benneryour episode hungry little monkey.
Can we do that?
No.
I don't I don't know.
We'll figure it out.
Scott BennerI I what the other one was good too.
What was the other title I said?
JordonOh, shoot.
Something about lungs.
Scott BennerOh, no.
That's because I know your last name and no one else knows it.
And we're not gonna share we we're not gonna share your last name, so I can't use it.
Because it what do it's it's on it literally is without context.
So I'll figure something
Jordonout.
Yeah.
Scott BennerDon't you worry.
Yeah.
Everything's gonna be fun.
JordonYeah.
Yeah.
Yeah.
I gotta find some more interesting stuff
Scott Bennerto talk about.
What what else what what made you wanna come on the podcast?
JordonThe shock and the very sudden, change in my lifestyle that was forced upon me.
Just kinda I was like, I have to like, I can't be the only one, so I gotta find somebody.
And I I found the podcast because my mom was like, I'm sure you could find a podcast that yeah.
So I looked up type one diabetes, and the first episode I found was the the dirty toilet bowl.
I don't know if you remember that one, but the the guy was, like, 25 and diagnosed around the same age.
JordonAnd, like, seemed like he noticed a lot of the same signs.
And I was like, I don't know.
As time has gone on, I have kept, like, putting pieces of the puzzle together, listening to the podcast, and, you know, that's helping me piece things together even more.
So I I really wanted to just kinda come on and and
Scott Bennertell myself.
Glad you did.
And you're talking about
JordonYeah.
Scott BennerHe had an there was an overgrowth in his toilet bowl because of all the sugar he was dumping.
Yes.
JordonYes.
And I actually had a friend see, we have, this mutual friend who has type one, and they've known each other since they were, like, really little.
And I think because she mentioned the black ring in the toilet bowl to me.
I was like, you know, whatever.
I sorry.
JordonI didn't clean the bathroom.
You know?
Now hindsight, she was like, yeah.
I was actually wondering, like, if someone in the house had diabetes because I know that.
And I was like,
Scott Bennergoddamn.
I never heard Yeah.
JordonBut, yeah, just funny stuff like that that I heard when I first started listening to the podcast, and I was like, no way There's someone who had the same thing that I thought was so bizarre happened to them.
Yeah.
Yeah.
Scott BennerIt happens to people all the time.
So and and and where else are you gonna hear about that?
No one's gonna tell you about that.
That's not a not that's not a thing you're gonna read in a book or even
JordonNo.
We don't sit around the dinner table talking about our our
Scott BennerHave you all noticed the black ring in the toilet bowl?
Seems like it seems like something's growing in there, doesn't it?
It's something you guys okay?
Everybody alright?
JordonI was, you know, having doing my own little science experiment.
That's
Scott Bennercan I tell you something I was thinking about the other day?
I think this kind of I think it'll dovetail nicely into this.
So while you were talking earlier, I watched a, this is gonna here's a lot of words nobody's gonna care about.
Tacodermis smaradensis.
It's a small Japanese grass lizard with a long tail.
Scott BennerI have a a a I have a colony of them living in a tank over here.
And, one of them was trying to get up on this big leaf, like, running but slipping.
It looked like it was on a treadmill for a while.
It was absolutely absolutely delightful.
This is not why I bring them up.
Scott BennerBut I I was looking at them the other day, and there's females in there, and they're gonna start laying eggs pretty soon.
And lizards are pretty simple animals.
Right?
Like, they need calcium.
And for some reason in captivity, they cannot get calcium the way they live in captivity, the way they get it out in the world.
Scott BennerSo when you give them food Yeah.
You dust their food with just calcium.
Dust.
Right?
Yeah.
Scott BennerAnd if you don't do that Yeah.
They don't die right away.
They don't die in a week or a month or, like but their bodies slowly are lacking the nutrients, the building blocks, the necessities to keep them healthy.
And then if the females lay eggs, that uses up most of their calcium stores to create the eggs, and then they'll sometimes pass after that if they don't have enough calcium.
Or they can get bone, like, something called metabolic bone disease.
Scott BennerLike, there's all these things that can happen that will lead to their death, and it's just about calcium.
Removing yourself from the the I can't believe I said it correctly.
Tacidermis smaradens.
I I never can say it out loud, I got it right this time.
Thank you.
Scott BennerWe putting them aside, like, there are so many little ingredients inside of you that you need to be healthy.
And you can take some of them away and not die, but it doesn't mean you're optimal.
And, you know, the Right.
JordonAnd you might not notice it for a long time.
Scott BennerThe lizard doesn't die the first day it doesn't have the calcium.
But the day that it rears its head, it's too late then.
And you seem okay every day between we stopped giving the lizard calcium and it died.
It seems I swear to god, they seem fine right up until they fall over dead.
And I think Yeah.
Scott BennerI don't know.
I was thinking about that the other day, and I don't know that people associate simple things like vitamin d, you know, your insulin.
These are things that are additive to your body that you need to add in in the right amounts to put yourself in an optimal situation.
And I it's hard to think about it that way, but keeping the lizards simplifies it for me.
And and
JordonYou understand it better.
Scott BennerJust for having watched one of them
JordonImplementing it on a small scale.
Scott BennerFor watching one of them have lived well with it and healthily, and, you know, I've had animals die too, and you don't know why exactly.
But I don't know.
I just I wish everybody Arden's friend called the other day.
They're on the phone.
She's she's of Indian descent.
Scott BennerShe's brown person.
She just moved to, like, somewhere really cold, and she started talking about issues on the the the FaceTime talking.
The FaceTime.
Look at me.
Like, a thousand years old.
Scott BennerYeah.
But bring the box on so I can see, I could see the Merv Griffin show.
JordonBring the box.
Scott BennerSo I'm talking to her, and she's she's feeling a little run down.
I said, are you taking vitamin d?
And she goes, no.
I'm like, you're a brown person living where there's no sun.
Please take vitamin d.
Scott BennerWhat are you doing?
JordonYour body's not too happy with you.
Scott BennerSo I said I said, what are you doing?
And so I'm texting her a link.
I'm like, you buy this right now.
Take one every day.
Don't make me come up there and yell at you.
Scott BennerThere's simple thing you just don't realize until, you know Yeah.
It's too late.
Or, by the way, it's never deficient enough to actually hurt you significantly, but you have a lessening of what your health could look like throughout your entire life.
You know what I mean?
Yeah.
Scott BennerAnd and just for for what?
Mhmm.
Like, eat an egg once in a while.
Have a little bit of red meat.
Have some chicken.
Scott BennerDo the thing.
Take a vitamin.
It's Jordan, please.
Are you taking vitamins?
JordonYeah.
Good.
Scott BennerGood job.
Thank you.
I appreciate that.
I appreciate that.
Every day, it's not hard.
Scott BennerThey're right in front of me.
Right here.
I keep them on my desk.
JordonIt's funny.
I actually listened to the supplement episode recently, and, and started being a little more regular with them and taking digestive enzymes and all
Scott Bennerthat stuff.
Better?
JordonYeah.
Good.
I do.
Yeah.
I was having a not quite sure if I might be having my second of the the autoimmune trifecta flare up now, but I feel like I don't digest food anymore.
Scott BennerWell, you do you think it's celiac?
Do you think it's just you having losing some of that functionality from your pancreas with digestion?
JordonOh, the latter.
Because celiac, from what I understand, is would be a little more obvious after eating
Scott BennerStuff like that.
JordonGluten in it, and and I don't necessarily have those symptoms.
Care
Scott Bennerof It's not that difficult.
Look.
Really look.
Listen.
JordonI'm just
Scott BennerI'm just taking out my vitamins right now.
I'll put them on my desk so that when you and I are done, I can take them.
I can I tell you the a funny vitamin story?
Because we are we're getting into it now.
Okay.
JordonYeah.
Do it.
Scott BennerSo I'm driving I don't know.
I think I was driving home from Georgia when Arden was in school there.
Mhmm.
And, I bring my vitamins with me.
I'm a I'm an I'm a I'm one of those old people who just throws a pill in their pocket.
Scott BennerI have no problem with it.
I'm driving home, and I think, oh, I haven't taken my vitamins.
I just ate something.
I'll take my vitamins now.
And I take them, but I must not have drank enough with them and didn't realize it.
Scott BennerSo
JordonYeah.
Scott BennerIt's a half an hour later.
This is such a weird this is one of the weirdest experiences of my life.
I burped, and this powder cloud came out of my mouth.
And I thought
JordonI've had the metamucive burst.
Scott BennerThought, oh my god.
I'm gonna die.
This is it.
Like, right like, right here.
Oh, like, maybe I should pull over so I don't crash my car.
Scott BennerWhen when obvious imminent death happens to me next.
And I panicked for a second, and I was like, what the hell just happened?
And then it took me a minute, and I put two and two together, and I'm like, I don't think I drank enough with the vitamin if the capsule opened up in my way.
I don't know where.
Like, I'm not good enough with, like, with how the body is designed to actually, like
JordonYeah.
Like, in your esophagus?
Scott BennerSub.
Right?
Like, that it's insane.
But I was, like, puff the magic dragon there for a second.
Yes.
Scott BennerIt's like, oh, look at this.
It's really great.
Nevertheless, drink a lot of water with your with your pills.
That's what I wanted to say.
JordonYeah.
Good note.
Scott BennerGood note.
Good note.
I'm older than you by, like I'm, like, twice as old as you.
So do you like the information from the podcast enough to put up with listening to an old man's podcast, or does it not feel that way to you?
JordonFor sure.
I think well, my, my style of, like, communication is a little different, I think, from a lot of the younger people I'm around.
So I I feel like I I do kinda click with, like, your sense of humor and stuff a little bit more, so I I don't have a problem listening to it.
And I like the messages.
You know, every now and then I I'm like, oh, Scott.
Scott BennerYou know?
Here he is.
JordonBut but, no, I I really enjoy it.
I think the way that you because the way people talk online, it's like, oh, this guy telling everyone to, you know, just take a bunch of insulin and blah blah blah, but you've repeated, you know, over and over about how like, that's not what you're telling me.
Scott BennerRight.
JordonDo you encourage people not to just take your word as law?
And, that's that's exactly how I think.
Like, I'm not just going to settle for for one opinion, but I'll absolutely take good sounding advice and and try to look for
Scott Benneron me online?
I don't look.
Is that happening still?
JordonActually, you know what?
What I saw might have been from a couple
Scott Benneryears ago.
There was a couple of years ago where, like, that I think people, like, misunderstood the idea of, like, that bold with insulin message.
And, like
JordonYeah.
It was seemed like it was around, like, heavy coke.
Scott BennerYeah.
But, yeah, extra crazy during COVID.
JordonYeah.
Scott BennerYeah.
Yeah.
JordonYeah.
Well, I mean
Scott Benneryeah.
Well, no.
Listen.
A lot of listen.
You don't realize how much of the crazy gets focused on, like, day to day life stuff.
Scott BennerAnd then when you take away the day to day life stuff, they got extra crazy, you gotta point it somewhere.
JordonYeah.
Yeah.
Well, and what do they call those people that are supposedly so pissed off with you, but they probably listen to every single episode and they Yeah.
Scott BennerI'll take it.
JordonYeah.
Scott BennerI don't care.
I don't I Yeah.
Possibly mean couldn't mean less to me.
I I I need the downloads.
We're good.
JordonAlright.
Scott BennerIt's a pretty it's a pretty simple system.
You know what I mean?
You listen.
I sell ads.
I get to keep making my podcast.
Scott BennerSo Yeah.
Yeah.
Keep listening.
Thank you.
JordonWhole life.
Scott BennerHave you ever seen the lion king?
JordonOh my god.
Scott BennerDo know Arden's never seen the lion king?
JordonYeah.
No way.
What is
Scott Bennerhow old
Jordonare you?
Scott BennerShe'll be 22 in a couple months.
JordonOh my god.
Yeah.
Scott BennerShe's try we try so hard to get her she's like, I don't care.
I'm like, okay.
So she really
JordonI mean, she'll feel differently after she fight.
It's inevitable.
It's inevitable.
Scott BennerI don't think so.
JordonShe'll be like, what's wrong with
Scott BennerShe's very stubborn.
JordonThis.
Yeah.
Scott BennerVery, very stubborn.
JordonI love hearing the way that you guys you guys talk to each other.
It's hilarious.
Scott BennerI wish she'd come on the podcast more.
She's busy.
JordonI was like
Scott BennerGoing to college.
JordonI was surprised to hear it how she spoke about diabetes in the podcast, but I understand it, and I think it's really funny.
Scott BennerYeah.
She really is, she's got a different way of thinking about it.
That's for sure.
It's her own way.
So I I think it's a good I think it's a good lesson, though, to hear that, you know, whether you're an adult or a person who's, you know, taking care of a child with diabetes, your expectation of how people are gonna deal with things or think about them or even feel about them, your expectation has probably very little to do with how they're actually going to respond.
Scott BennerSo
JordonOh, for sure.
Yeah.
Yeah.
Because I thought my one close friend with type one when I was diagnosed was like, oh my god.
I'm so excited to have, you know, someone else.
But then but I really like talking about it, honestly.
JordonMhmm.
And maybe that's because I'm so new, and and she's been in it for a decade.
But it it's just I I'm not met with the same energy, you know
Scott BennerShe don't
Jordonabout it and Yeah.
She doesn't care.
Yeah.
And, and that's fine.
Scott BennerYeah.
No.
I just think it's I think it's valuable because I think a lot of times either people can judge themselves against others.
Like, I guess this is how I should feel about it or this is how I should think about it.
Or parents, I think, put their feelings about it onto their kids.
Scott BennerThey're like, well, this is how they're gonna deal with it or I know they're gonna grow up fine.
Like, you you don't know how anybody's gonna grow up with Like, this is not a Right.
This is not a preplanned thing.
Just because it's the way you handle it doesn't mean it's the way they're gonna handle it.
You might be better or worse at it than they are or will be, and there's not a lot you can do about that.
Scott BennerYou you know?
JordonNo.
Not at all.
Because I mean yeah.
Yeah.
Yeah.
JordonI'm sorry.
I just saw it's a long time.
Scott BennerYeah.
Yeah.
JordonBeen talking for a long time.
I'm sorry.
Scott BennerNo.
Don't be sorry.
What are sorry about?
But we will we will wrap up, though.
This was lovely.
Scott BennerI do really appreciate Alright, man.
Hold on one second for me.
You were terrific.
Thank you for doing this.
I really appreciate it.
JordonThank you, Scott.
Yeah.
Scott BennerToday's episode of the Juice Box podcast was sponsored by the new Tandem Mobi system and Control IQ plus technology.
Learn more and get started today at tandemdiabetes.com/juicebox.
Check it out.
This episode was sponsored by Touched by Type one.
I want you to go find them on Facebook, Instagram, and give them a follow, and then head to touchedbytype1.org where you're gonna learn all about their programs and resources for people with type one diabetes.
Scott BennerToday's episode of the juice box podcast is sponsored by the Eversense three sixty five.
You can experience the Eversense three sixty five CGM system for as low as $199 for a full year.
Visit eversincecgm.com/juicebox for more details and eligibility.
Okay.
Well, here we are at the end of the episode.
Scott BennerYou're still with me?
Thank you.
I really do appreciate that.
What else could you do for me?
Why don't you tell a friend about the show or leave a five star review?
Scott BennerMaybe you could make sure you're following or subscribe in your podcast app, go to YouTube and follow me, or Instagram, TikTok.
Oh, gosh.
Here's one.
Make sure you're following the podcast in the private Facebook group as well as the public Facebook page.
You don't wanna miss please, do you not know about the private group?
Scott BennerYou have to join the private group.
As of this recording, it has 74,000 members.
They're active talking about diabetes.
Whatever you need to know, there's a conversation happening in there right now.
And I'm there all the time.
Scott BennerTag me.
I'll say hi.
Check out my algorithm pumping series to help you make sense of automated insulin delivery systems like Omnipod five, Loop, Medtronic seven eighty g, Twist, Tandem Control IQ, and much more.
Each episode will dive into the setup, features, and real world usage tips that can transform your daily type one diabetes management.
We cut through the jargon, share personal experiences, and show you how these algorithms can simplify and streamline your care.
Scott BennerIf you're curious about automated insulin pumping, go find the algorithm pumping series in the Juice Box podcast.
Easiest way, juiceboxpodcast.com, and go up into the menu.
Click on series, and it'll be right there.
Hey.
What's up, everybody?
Scott BennerIf you've noticed that the podcast sounds better and you're thinking, like, how does that happen?
What you're hearing is Rob at Wrong Way Recording doing his magic to these files.
So if you want him to do his magic to you, wrongwayrecording.com.
You got a podcast?
You want somebody to edit it?
Scott BennerYou want Rob.
#1868 Doomed From the Start
Jordan ignored severe weight loss and fatigue for months before a shocking Type 1 diabetes diagnosis at 25. Listen to his humorous, cautionary tale about his slow-onset honeymoon phase.
Key Takeaways
- Jordan was diagnosed with Type 1 diabetes at 25 after ignoring months of severe symptoms, including a 40-pound weight loss, extreme fatigue, and excessive urination.
- A trip to the dentist for oral lesions (lichen planus) was an early warning sign of a potential autoimmune issue before his official diagnosis.
- Despite his age, Jordan's primary care doctor quickly suspected Type 1 diabetes, promptly ordering GAD-65, c-peptide, and zinc transporter antibody tests.
- Jordan is currently experiencing a slow-onset "honeymoon phase," requiring only a small basal insulin dose and frequently experiencing lows due to intense exercise and rebounding beta cell function.
- Basic health maintenance, such as taking vitamins and digestive enzymes, can be crucial for overall well-being and managing the systemic inflammation often associated with chronic conditions.
Resources Mentioned
Introduction and Sponsors
Scott BennerWelcome back, friends, to another episode of the Juice Box podcast.
JordonHello.
My name is Jordan.
I am from Maryland, and I have type one diabetes.
I was diagnosed close to a year ago.
I am about to turn 26 years old.
Scott BennerIf you're looking for community around type one diabetes, check out the Juice Box Podcast private Facebook group.
Juice Box Podcast, type one diabetes.
But everybody is welcome.
Type one, type two, gestational, loved ones, it doesn't matter to me.
If you're impacted by diabetes and you're looking for support, comfort, or community, check out Juice Box podcast, type one diabetes on Facebook.
Scott BennerIf you're living with type one diabetes, the After Dark collection from the Juice Box podcast is the only place to hear the stories that no one else talks about.
From drugs to depression, self harm, trauma, addiction, and so much more.
Go to juiceboxpodcast.com, up in the menu, and click on after dark.
There, you'll see a full list of all of the after dark episodes.
Nothing you hear on the juice box podcast should be considered advice, medical or otherwise.
Scott BennerAlways consult a physician before making any changes to your health care plan.
This episode of the juice box podcast is brought to you by my favorite diabetes organization, touched by type one.
Please take a moment to learn more about them at touchedbytype1.org on Facebook and Instagram.
Touchedbytype1.org.
Check out their many programs, their annual conference, awareness campaign, their d box program, dancing for diabetes.
Scott BennerThey have a dance program for local kids, a golf night, and so much more.
Touchedbytype1.org.
You're looking to help or you wanna see people helping people with type one, you want touched by type1.org.
Today's episode is also sponsored by the Tandem Mobi system with Control IQ plus technology.
If you are looking for the only system with auto bolus, multiple wear options, and full control from your personal iPhone, you're looking for Tandem's newest pump and algorithm.
Scott BennerUse my link to support the podcast, tandemdiabetes.com/juicebox.
Check it out.
The podcast is also sponsored today by the Eversense three sixty five, the one year wear CGM.
That's one insertion a year.
That's it.
Scott BennerAnd here's a little bonus for you.
How about there's no limit on how many friends and family you can share your data with with the Eversense Now app?
No limits.
Eversense.
A Slow and Ignored Onset
JordonHello.
My name is Jordan.
I am from Maryland, and I have type one diabetes.
I was diagnosed close to a year ago.
I am about to turn 26 years old.
Scott BennerOh, well, about to be happy birthday.
Good for you.
JordonThank you.
Thank you.
Scott BennerMaryland, the state that connects easily to Pennsylvania, no one realizes it.
JordonThat's right.
Yeah.
Mhmm.
Sometimes it, depending on how far into Pennsylvania, it could be, like, an hour drive or a four hour drive to get there, though.
Scott BennerYeah.
My son went to college in Central PA.
JordonAnd Oh, really?
Scott BennerYeah.
And he had he's a friend that lives in Maryland, his parents would show up at baseball games, and I'd always be like, how long did it take you to get here?
And they were like, oh, forty five minutes?
And I was like, wait.
What?
Scott BennerLong.
Yeah.
That's okay.
JordonThat's kinda bizarre.
Scott BennerI kinda don't understand the map, Jordan.
That's all.
JordonBut, yeah, me neither.
Scott BennerWhat precipitated this diabetes thing?
Was anything going on?
Was your health weird, or did it come on all at once?
What was the process?
JordonTruthfully, Scott, do not know.
I used to think that I was super in touch with my health.
Truth be told, I just kinda got sick December 2024, and then it was like I I never knew if I was gonna wake up in the morning and feel perfectly fine or feel like death.
Mhmm.
And it took me a good six months before I went in to the doctor, and I I just went in for a physical.
JordonI wasn't even prepared to to be like, hey.
I've been feeling ill for a little while.
I just thought, you know, we'll see how things go.
Scott BennerWere you, like, 24, 25 years old at that point?
JordonYeah.
So I just I had just turned 25 when I got diagnosed.
Scott BennerAny health issues throughout your life prior to that?
JordonAsthma, allergies.
That's pretty much it.
Just the asthma and allergy.
Scott BennerNothing that makes you predisposed to just accept not feeling well randomly for no reason?
JordonCorrect.
Yeah.
Yeah.
Nothing like that.
Scott BennerWhy'd you do that then?
Think I I know we've been talking for two minutes, but, like, think on that for a second.
Like, how come you felt so horrible periodically and were just like, I
Jordonhave never been, like, perfect in terms of of, you know, eating well, exercise you know, like, I'll I'll eat a crappy meal with my friends kinda frequently, you know, interspersed with my healthy meals and stuff like that.
So I kinda figured, like, hey.
Maybe I'm I'm just so inconsistent with my health that, you know, I'm just some days, I wake up feeling crappy, and sometimes I feel good.
Scott BennerThis is what it feels like when your body's processing a half a pizza and a bag of Doritos.
JordonExactly.
Scott BennerI see.
And are you living at home or alone by then?
JordonI, live at home.
Scott BennerOkay.
So so so you there are people around.
Like, you could turn to your mom and say, I don't feel good, but you just kinda don't do that.
JordonYeah.
Unless it was, like, really taking its toll on me unless, you know, I was staying in bed for five hours longer than I usually did, then she you know, it would be obvious to everyone else, but I I just didn't really mention it.
Scott BennerAnd that was happening sometimes?
Get up in the morning, you're like, I can't I can't function?
JordonThat happened more frequently, towards the diagnosis.
So, just for reference, I usually wake up around seven in the morning.
There were a couple mornings that I woke up at eleven or noon.
It just it didn't make sense to me, and that was worrisome.
I was like, what the hell is you know?
Scott BennerOh, wow.
Like, you'd open your eyes and think, how is it possibly 11AM something's wrong?
JordonYeah.
There was one morning I think I woke up at, like, nine, and I was I couldn't move my body.
And so I was like, maybe I just need an extra thirty minutes to sleep, and then I woke up at one in the afternoon.
Scott BennerBecause you know how frequently people wake up and can't move.
JordonHonestly, though, that had never happened to me.
Scott BennerYeah.
That's why I should have panicked you.
Jordan, what's Why is everyone not as worried about themselves as I am?
I wake up and I have that feeling.
I immediately I'm screaming.
Scott BennerSo what?
Everybody here shot.
JordonYou know?
Scott BennerI need help.
Yeah.
Yeah.
Well I Okay.
How long does this go on for, Jordan, before you, like, you speak up or do something?
JordonI would say probably, like, two months.
Like, from my birthday in springtime to I was diagnosed in June.
So, yeah, a couple months.
Scott BennerWow.
JordonBut I think from the first sorry.
I don't I don't wanna be gross or too specific here.
But
Scott BennerNo.
Definitely be gross and too specific.
JordonGo ahead.
In December so I was diagnosed in June 25.
In December 24, I went over to a friend's house, and we were just hanging out for most of the day.
And it was Christmas time, so they had those, like, Godiva snowmen or whatever it is.
Mhmm.
JordonAnd I was, like, I was housing on the sky.
Like, I ate enough to kill a baby elephant and went home later that night, and I threw up for probably, like, five hours.
I was going to the bathroom, like, every ten minutes maybe.
Scott BennerJordan, what what they call, coming out of both ends?
JordonNo.
No?
No.
Nothing was
Scott Bennerwere peeing and throwing up?
JordonI was just throwing up.
Scott BennerOh, you say oh, going to the bathroom.
I thought you meant when you say going to bathroom.
JordonI'm sorry.
Scott BennerNo.
Don't be sorry.
That's me.
I thought you meant
JordonI made it to the bathroom.
That's why I added it in the story.
Scott BennerThe vomit.
Okay.
JordonYeah.
People give you a,
Scott Bennerlike, side eye because those things are kind of expensive, those little chocolates where they're like, what's up with him?
You you know what I mean?
JordonYes.
But I have always I've always been the kind of guy that, like, if I'm hungry, I'm gonna eat all the food and I don't really care.
Scott BennerAnybody thinks about it?
Yeah.
Yeah.
I mean, DKA.
Right?
Scott BennerNo.
No?
Okay.
Go on.
What happened?
JordonThis was this was six months before I went to the doctor.
Scott BennerOh, okay.
Keep going.
JordonSo I was like, oh god.
Dying.
Called out of work for the next two days, but, honestly, I was fine.
That little bout finished up.
I woke up the next morning fine.
JordonIt was so weird.
I think I went on being okay for another few months before that, like, terrible fatigue set in.
Scott BennerYeah.
JordonAnd then I was like, okay.
Let's let's schedule
Scott BennerI go to doctor.
Yeah.
Hey.
You call out of work.
Do you say, hey.
Scott BennerI ate a bunch of, Santa Claus chocolates and threw up.
I can't come in, or you just make something
JordonScott, I'm a master at making up excuses for getting out of work.
I don't remember what I said, but they were like, oh my god, you know, please take care of yourself.
Yeah.
Scott BennerI I don't know many people are gonna have contacts for this, but the comedian, Arty Lang, used to be on the Howard Stern Show, and, there'd be there's calls of him, like, calling and saying he couldn't come in to do the show that day, he was like, hey.
I'm I'm not feeling great.
He was on heroin.
He was on heroin, by the way.
It was like he would but he would do he would do a little cough.
Scott BennerYeah.
JordonWho knows what they thought of me, but I, again, didn't care.
Scott BennerDon't make me sit back, Jordan, and think about the arty days on the Stern Show.
They were perfect.
JordonOh my god.
Scott BennerBut you have no idea what I'm talking about.
It's okay.
JordonI don't.
Scott BennerYou should Google Arty Lang's nose at some point in your life.
JordonFor it now.
Yeah.
Scott BennerYeah.
Just to see what just to see what the cocaine could do to you.
JordonRight?
Yeah.
Exactly.
Scott BennerJordan, are your parents not involved at all?
How are you just what if you just set up a physical?
JordonI've been like this since I was younger.
I always just kinda took care of business before it could get to my parents.
And then when they found out things were going okay, they were like, oh, good job, Jordan.
Scott BennerYou know?
Lot of kids?
Lot of brothers and sisters?
JordonNope.
Just me and one older brother.
Scott BennerWhat are you protecting them from?
JordonOh, god.
I don't know.
Scott BennerCome on.
Does it about seem like she can't take it?
She get upset easily?
What it's it's simple psychology.
Figure it out, Jordan.
Scott BennerWhy do you keep it from them?
JordonYes.
What you said is is pretty spot on.
Scott BennerOkay.
Alright.
JordonI just to to kind of save them from stressing out because they're both emotional people, and I'm an emotional person.
So I think it also stressed me out when my parents got concerned.
Scott BennerMakes sense.
JordonSo I was just like, let me take care of this.
And especially at 25, I was like, you know, I can I can schedule my own doctor's appointment?
Scott BennerWell, you feel like an adult, first of all.
And secondly, you're not, by the way, but you feel like an adult.
And, by the way, I think I had a kid when I was 27.
I wasn't an adult then either.
But also That's crazy.
Scott BennerYeah.
Also, you want to yeah.
I know younger people now are like, when did you have children?
That's not happening.
JordonHard to imagine.
Scott BennerYeah.
Yeah.
But you you, you know, you're like, look.
I'm old enough to take care of this.
Also, I'm a healthy person.
Scott BennerThere's nothing really wrong.
You just keep thinking it's gonna go away.
Right?
Right.
Correct.
Scott BennerYeah.
I gotcha.
Okay.
So you head off to the doctor.
Do they pick it up at the physical?
The Dentist and the Physical
JordonWell, you know, the in the the office, my visit with the doctor was fine.
Blood pressure was good, heart, lung, blah blah blah, all that crap.
But I oh, I forgot to mention this.
I am gonna backtrack.
Sorry.
JordonBut it it
Scott BennerGo ahead.
Don't be sorry.
JordonFills in the story nicely.
I had gone to the dentist a couple months earlier, and she found she used the word lesions, which creeped me out.
Some lesions in my mouth and said this looks like oral lichen planus.
I don't know if you've ever heard of that.
Scott BennerOkay.
JordonBut she said it can often be triggered by an autoimmune issue.
And I was like, I I don't have any autoimmune issues.
And the hygienist was like, have you been to the doctor recently?
Got your labs look good?
And I was like, well, yeah.
JordonThey looked fine three years ago.
Scott BennerThree years ago?
They
Jordonwere perfect.
That was the last time I had been to the doctor.
So I was like, you know, I was just I was panicking a little bit and just trying to still cover it up at that point.
Scott BennerIf I can I just say for dentists who are listening, the reason we don't trust you, and we should, dentists are a good first line of defense for bigger issues?
Yes.
But we don't know if you're trying to upsell us some peroxide trays or if there's really a problem.
You understand?
JordonSeriously.
Yeah.
Scott BennerYou seem like a Charlton once in a while, dentist.
Try not to don't be so thirsty with the money all the time, and maybe we'd listen to you when you said there was
Jordona problem.
I don't trust you.
Scott BennerMhmm.
I know.
I know.
Go ahead.
JordonSo yeah.
But because at first, was like, oh, this could be precancerous and blah blah blah blah blah, and then she came up with the autoimmune thing, which also didn't make sense to me because I'm like, why would I have mouth cancer or an autoimmune issue?
Scott BennerDo you have any context for what autoimmune means when she's saying that?
JordonNo.
Scott BennerOkay.
JordonNot none whatsoever.
And, so I figured this was in about April, I think.
So two months before my diagnosis, and that's when I set up my physical because I was like, okay.
It's, you know, probably best to see.
So I mentioned into this.
JordonYeah.
Why not?
What the hell?
Scott BennerJust in case my lesion is mouth cancer, why don't I maybe take a looky loo and see what happens?
Right.
Right.
What's your expectation going to that doctor?
Are you thinking, like, there's nothing wrong, or do you are you worried something's really up?
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JordonOh, I'm absolutely thinking nothing's wrong.
Even though I'm sleeping until noon, have lesions in my mouth, and yeah.
Yes.
And by the way, I've lost 40 pounds.
And yeah.
Scott BennerI think this podcast is just a look into all of your stupidity and anxiety.
Not you, Jordan.
Everybody everybody listening.
I love I love these first of all, I'm glad you're alive.
But, like Thank you.
Scott BennerYou know, like, listening back in con like, you know, with some context in hindsight.
Mhmm.
Really, like, I everyone's listening going like, oh my god.
What a dumbass.
Why didn't he go to the doctor?
Scott BennerBut you all do the same thing.
So yeah.
I'm the only one who screams the minute something's wrong.
JordonYeah.
Yeah.
And so I well, I had lost all that weight, but I also began working as a personal trainer shortly before that point, and I started rock climbing, like, pretty intensely.
So I was doing all this crap, and I figured, hey.
Maybe maybe all of this is because I'm I'm overtraining a little bit anyway.
Scott BennerCan I interject one more time?
I'm sorry.
I know I'm choppy up here, but but, like, I want everyone to listen to what just got said there.
Jordan, 25 years old, has turned into a personal trainer.
You're out there giving him your money.
Scott BennerHe can't figure out what's
Jordonhow to take care of myself.
Scott BennerHe can't take care of himself, and you're paying him to help you take care.
Just open up chatty p t and ask it for a workout plan.
Okay?
I'm sorry Jordan's out of business now, but, like
JordonDo it.
Scott BennerStop thinking everybody knows something.
You shouldn't trust me.
I don't know what you're doing right now.
Like No.
Go ahead.
Scott BennerGo ahead.
Sorry.
JordonOh, but yeah.
That was that was pretty shameful moment for me.
So I'm in the doctor.
I got the blood drawn, and I walked out.
It's springtime.
Diagnosis and the A1C Shock
JordonIt's beautiful outside, Scott.
And I left the doctor.
I was like, I am so healthy.
You know?
I'm feeling great.
JordonI just, just went to the doctor.
I'm a big boy now doing that by myself.
And, so the lab results start coming in later that afternoon.
And it's like, oh, that looks good.
Electrolytes were a little bit off, but nothing crazy.
JordonAnd then the, whatever it's called, metabolic panel comes in, and it's like, good.
Good.
Good.
Good.
And then glucose is three fifty seven.
JordonAnd I was like, oh, well, that's, you know, that's a bit high.
Scott BennerSeems wrong.
Could be feeding those lesions, maybe, all that sugar.
JordonI was like, maybe.
I I came up with everything, every excuse, and I was in the car with two friends at the time.
And one of them is is very smart, still love her, but at this point in time, I was I was ready to jump back and strangle her.
But she was like, oh, you know, like, if you're if you eat late at night, you know, maybe your food wasn't didn't have time to digest, and so you have and I was like, yeah.
But it's 03:57.
JordonThat's pretty
Scott BennerShut up, Patty.
You don't know what you're talking about.
JordonYeah.
I was like I don't know.
I I was, like, shivering, I swear.
And my friends were just kinda like, what's wrong with you?
And then I went home and told my mom, and she just looked at me, like because my mom is she spent a lot of time working in the center for biologics, and, you know, she's she's familiar with, like, islet cell transfers.
JordonSo she knew all about diabetes and all that stuff before I did, I guess.
She her face was not very comforting, just to say the least.
Scott BennerYeah.
JordonAnd so I was like, okay.
It's fine.
You know, we'll wait for more.
And then the a one c came in, and I almost passed out because it was fourteen point five.
Scott BennerWow.
JordonAnd I was just kinda like, okay.
So I guess
Scott BennerI have diabetes.
JordonThat's that's something Yeah.
Scott BennerConnected there?
Do you say I have diabetes when you see the a one c?
JordonI think I knew, but verbally, I was not acknowledging it.
I knew, but I was still trying to, I think it goes back to, like, not wanting to, you know, have everyone be concerned and stuff.
Scott BennerYou all think backwards.
Can I just say can if you put me in this exact situation, here's what happens to me?
I have something I I get a little bit of, what they call information.
Then and then if it's enough to actually be concerned about, which is where you are, then I deep I deep dive it, and I make sure I understand all the possibilities, whether they're uncomfortable or not.
And then I wait to get the rest of the information so that when the rest of the information comes, I can apply what I've learned to the info the new information I have and come to a reasonable conclusion.
Scott BennerThen whatever that conclusion is, we move forward.
JordonWell, listen, Scott.
Scott BennerYeah.
JordonCongrats on being level headed, but some of us, when we do a deep dive, get even more crazy and anxious and paranoid.
Scott BennerThat doesn't happen to me.
I just got because I think I've been through so much.
I'm expect something terrible to happen.
I'm okay.
I just wanna I just wanna know, like, what am I supposed to do when that occurs.
Scott BennerYeah.
And then if it doesn't occur, it's like winning the lottery.
JordonYeah.
Scott BennerYeah.
Like, everybody's like, oh, I I found a lump.
I didn't wanna get I didn't wanna get it looked at.
Get it looked at.
It's probably nothing, and you're gonna feel like you won.
Scott BennerLike and if it and if it is something, maybe it saves your life.
Yeah.
Little bit of bad news
Jordonhappening here.
Scott BennerLittle bit of bad news, lot of good news afterwards.
And Yeah.
Sure some people die.
But, like, if that's me, I also I I also won't care because I'll be dead.
Do you understand how it's so simple.
Scott BennerI can't explain the world to you people every day.
Okay?
This is very, simple.
That's all.
You're either gonna live or you're
Jordongonna gonna say something like this to me when I talk.
Scott BennerOh, Jordan, you're a listener.
That's nice.
I appreciate your support.
JordonI am yeah.
Yeah.
Scott BennerOkay.
Yeah.
It's very simple.
You're either gonna live or you're gonna die.
If you're gonna live, do it as well as you can.
Scott BennerAnd if you're gonna die, it doesn't matter.
Do you understand?
You'll be dead.
JordonYeah.
Scott BennerYou know who's not worried about how they feel right now?
Benjamin Franklin.
JordonDead.
Dead.
Scott BennerYeah.
Yeah.
He couldn't possibly care less nor would he be able to if he could.
Do you understand?
He's gone.
JordonVery true.
Scott BennerI can't anymore, Jordan.
That's it.
This is the last it's the last episode.
I can't do it anymore.
Okay?
Scott BennerIt's all so simple.
The one that ended the podcast.
No, Jordan.
It's everybody together.
It just it came together cumulatively, and this is where it exploded.
Scott BennerI just can't alright.
Alright.
Fine.
I'll stop.
Let me relax.
Scott BennerHold on a second.
Let's put an ad here.
JordonLet's do it.
Yeah.
Okay.
What do you
Scott Bennerthink it'll be?
US med?
Omnipod?
Who knows?
JordonWe'll find out.
Scott BennerWe'll find out in a second.
Okay.
Go ahead.
I'm sorry.
Continue on.
Scott BennerI'm gonna stop.
But I get no.
No.
I felt like I pulled a soapbox out.
I didn't mean to do that.
Scott BennerGo ahead.
JordonNot at all.
So got yeah.
A one c came back, and it was ridiculous.
And so I just had to wait because the doctor was out for the day.
It was, you know, after 05:00 at that point, she'd gone home.
JordonMhmm.
So I I wasn't expecting it, but I I got a call at, like, 09:00 in the morning, and she was like, are you okay?
Like
Scott BennerThe are you okay call?
JordonYeah.
Are you feeling okay?
Because it looks like you have diabetes.
And she asked she then asked me all of the, like, have you been eating a lot more sugar in the last three months?
Have you been well and I was like, yes.
JordonI don't know.
Because at that point, I'm like Yeah.
My god.
I gave myself diabetes because I have
Scott Bennerso that Santa Claus'?
JordonExactly.
Scott BennerYeah.
JordonSo I said yes even though it wasn't really true.
I mean, I I eat really well.
Mhmm.
I asked her, like, what type is this?
And she was like, I I have no clue.
JordonWe're gonna do some more testing.
And see this, I've listened to, you know, a million episodes of the podcast and have heard about how people's doctors have treated them, you know, especially, like, young adults being diagnosed and initially misdiagnosed.
Scott BennerYeah.
JordonBut that man, this woman, she put in the GAD, 65 Right away.
Immediately.
Scott BennerGood for you.
JordonSo I I went in that after that phone call the next morning, got another blood draw in my, I think I was at, like, two seventy five fasting.
Mhmm.
And I had probably been not eating, you know, ever since seeing those numbers, and so two seventy five was high.
Scott BennerTwo questions.
How did you know to ask what type it was?
JordonBecause something just didn't seem right.
I mean, I, you know, I went to to school for nutrition science.
You know?
I took anatomy, physio blah blah blah.
And I was just kinda like, I'm 25 years old.
JordonI am at a normal weight.
I eat pretty well, and I'm I'm ridiculously active.
So, like It would be
Scott Bennerodd if I had type two diabetes.
Yeah.
Okay.
JordonYeah.
Even even though I'm not perfect with my diet.
Scott BennerMhmm.
Okay.
JordonI have two friends with type one.
Scott BennerOh, okay.
JordonSo I was Well, that's helpful.
I I I'm I'm aware of type one even though I I I didn't know too much
Scott Bennerabout it.
You all don't live on the same street next to a toxic waste dump or something like that, do you?
JordonHey.
We live pretty damn close, so there might be something there.
Scott BennerNo kidding.
Okay.
Keep going.
JordonYeah.
So she she told me we would do some testing, and the GAD it came back.
I think the reference value was, like, normal is less than five international units or something, and mine was, like, 15.
So I was like, oh, so that's positive.
They said it's kind of, like, on the low end of positive, but still.
JordonYou know?
Scott BennerMhmm.
JordonAnd then they tested c peptide, which was also, like, just under normal, the low end of normal, and that was after eating.
And then they did the zinc transporter antibody.
Yep.
And that one was also positive, but on the low end.
So I that kind of all made sense with the fact that I was not in DKA yet.
Scott BennerYeah.
The slower the slower diagnosis that was happening to you.
JordonYes.
Yeah.
Let me just say again, I I wanna give a lot of credit too, but this was my primary care.
Scott BennerWow.
Wow.
JordonYeah.
Young lady, which I think had a lot to do with it, she just put all that in right away, got me on insulin right away.
Scott BennerYou think because she was young, she's motivated to do a good job.
She's still interested in in her work, that kind of thing.
Is that what you're saying?
JordonCorrect.
Yeah.
Because she left, actually, I was very upset because I got an email saying that she was no longer with Kaiser.
And I don't know if it doesn't matter if I say that out loud.
But No.
JordonAnyway so I had to choose a new one, and I chose an older man who we talked about the fact that it was type one.
Yes.
Antibody positive.
But I looked back at the clinical notes after my appointment, and I was so pissed off because he had written down that I needed here I am sitting in his office, a hundred and thirty pounds.
I'm, like, five nine.
JordonAnd he writes down that I need exercise counseling and diet counseling.
And, like, he's he's talking to me as if, oh, yeah.
I bet you're doing all that exercise to try to, you know, like, lower your blood sugar and keep your weight in check.
And I was like, not really.
I I lost 40 pounds without trying.
Scott BennerYeah.
Yeah.
One thirty on a five nine frame.
You must have looked like a 12 year old girl.
JordonOh my god.
Yeah.
Yeah.
Yeah.
So this was one one of the things that really made me upset, concerned before I made the doctor's appointment was I went to a baseball game with my friends, and we took a group picture.
JordonAnd I was on, like, the side, so I had to, like, lean in.
And my neck, ugh, it looked so gross.
It was, like, so skinny and long, and my face, my cheekbones were sunken in.
Scott BennerI'm five nine, Jordan.
And the last time I weighed myself, I was one seventy six, and I look thin.
Like like Yeah.
JordonYeah.
You know what I pictures of you since you've, since you've lost weight.
And I'm like, wow.
That guy's that guy's thin.
Scott BennerPhotograph well.
But, like, I'm telling you in person, like, I I look like, I look thinner.
Like and I can't imagine.
If you took 40 more pounds off of me, I'm trying to imagine what that would be like.
JordonYeah.
I go to this brewery with my friends.
We play, like, trivia and stuff there, and they have these terribly uncomfortable wooden chairs.
Scott BennerOh, yeah.
JordonAnd I started to have to get up, like, every few minutes to, quote, go to the bathroom.
But, well, I was doing that because I was peeing all the time.
Scott BennerBut your butt hurt.
JordonYeah.
My Yeah.
Hurt.
And I could see my hip bones.
I could see my my shoulder points were just yeah.
Scott BennerYeah.
Yeah.
I have trouble on a plane.
Some of the airline seats are really uncomfortable now because I my ass is gone.
Like, it just yeah.
Scott BennerI'm not even kidding.
JordonCushion.
Scott BennerYeah.
They're they're they're yeah.
No kidding.
Yeah.
Like so it it's no joke.
Scott BennerYour bones are pushing on your skin.
Yep.
Yep.
Oh, Jesus.
JordonAnd
Scott BennerLook at you.
JordonAnd that yeah.
I know.
But, you know, the funny thing that I just I gotta be honest.
I gotta mention it.
I got out of the shower one day and was like, damn, dude.
JordonLike, you have been doing a great job, you know, killing it in the gym.
Scott BennerYeah.
I am ripped.
Look at me.
JordonSo at the on the one hand, you know, cancerous lesions in my mouth and vom all that stuff.
Scott BennerBut look how thin I am.
Yeah.
Jesus.
Yeah.
Usually the way, a number of people have said that to me over the years.
Scott BennerIt's usually women.
I just want you to know.
But, like, it's, today, it's you.
I like that.
I'm like, you're like, oh, look at me.
JordonWell, I I've always been healthy, but always had a my it's funny.
My grandfather always said I had baby fat, and that always pissed me off.
Yeah.
So I was like, damn.
I'm finally, it took me until 25, but I lost my baby fat.
Family Health History and Autoimmune Links
Scott BennerIs he is he still alive?
Did you go show it off to him?
JordonHe is still alive.
And, you know, I this, kinda off topic off topic, but he was one person I thought that I would really be able to talk to about the diabetes, but he didn't even understand.
Scott BennerWhy'd you think you'd be able to talk to him about it?
JordonI don't know considering he was making, you know, asinine comments about my weight and body composition when I was a child.
But
Scott BennerGreat generation.
The greatest generation.
You know what I mean?
JordonYeah.
Seriously.
He's a a guy who fancies himself to be wise.
I can I'm trying to put it as nicely as I
Scott Bennercan.
So when you were younger, you were like, I think this guy knows something.
He tells me he knows something.
Then you went to him, you're like, you don't know anything about this.
JordonCorrect.
Scott BennerYeah.
Yeah.
He's what they call, foolish.
JordonYep.
Yeah.
Some might say.
Yeah.
Scott BennerThat's awesome.
Your dad's mom or your mom's mom?
JordonMy dad's mom.
Scott BennerThat's okay.
Okay.
Is your dad the same way, is your dad like
JordonSorry.
My dad's dad.
Scott BennerYour dad's dad?
Sorry.
Yeah.
And that was me.
I led you wrong there.
Scott BennerIs your father similar, or did he go different path from your grandfather?
JordonActually, he took a a worse path.
So my dad my dad has early onset Alzheimer's.
Oh, god.
Sorry.
Been, yeah.
JordonThank you.
That's he was diagnosed about three years ago, but the whole process has been probably about a decade long.
Scott BennerNo kidding.
How old is he now?
JordonHe is 50 about to turn 57.
Scott BennerOh, that's harsh.
I'm sorry.
JordonYeah.
But, no, my dad was not anymore
Scott BennerLearned in his time?
JordonNo.
Correct.
Scott BennerJordan's like, listen.
We're on our own.
Okay?
JordonYeah.
I can't You know, going back to it, that's another reason I I, like, I have tried to take care of stuff myself is because I'm just like, I I can't.
Scott BennerDo you think that's because don't you think everybody feels like that about their parents to some degree?
JordonProbably.
But I also know a lot of people whose parents like, I I mean, I listened to you talking about how you still you know, if if Arden needs help, you know, you're there to help.
Not that you're there all the time or your son, But it's just I don't know.
I guess everyone's a little different.
Scott BennerBut, you know, they don't see it that way.
Right?
That you listen to me and you think if my father had half on the ball, this guy does, I'd be better off.
But my kids think I'm an idiot too.
Sure.
JordonYeah.
Yeah.
Yeah.
But that's that's because they grew up with you.
That way, they're not used to it being the I I wonder if they would feel differently now that they've, like, been to college, been out of house.
JordonI mean, I'm sure they
Scott Bennerfeel surprised.
Yeah.
Well, listen.
I'm sure at some point, but I think it's part of the the natural, like, separation process.
The at some point, you have to feel like because I'm gonna go make my way in the world, and I know things.
Scott BennerAnd if you if you keep thinking, like, well, they're smarter than me.
I'll just sit here.
It's what's it?
Infanalyzing?
Is that the word?
Scott BennerI think it's a natural part of, like, leaving the nest to think that the the nest you're leaving is not as good of a situation as you could create for yourself.
JordonSure.
I there is there's some truth to that because I I you know, parents always say, like, I want you to have a better life than I did, and I think that to some extent, that's that's usually the case.
Right?
Scott BennerLike Yeah.
I mean, I tell my kids, good luck creating this life as good as I've created for you.
I don't think have to get out there and work your ass off because I've been working nineteen hours a day my whole life, so good luck.
JordonRight.
Scott BennerYeah.
JordonYeah.
Yeah.
Yeah.
I that's one thing that actually my mom my mom is super supportive, and, I mean, I've I've learned pretty much everything from her.
Scott BennerThat's awesome.
JordonShe definitely supports me in that kind of, like, go out there and and try to try to do better, you know, where you can.
And I I think it's a lot more pertaining to, like, emotions and, like, just well-being.
Not, like, go out there and figure out how your career is gonna blah blah blah, this and that.
Mhmm.
It's generally more like how can you create, like, a fulfilling life for yourself, take care of yourself.
Scott BennerWell, that's
Jordonthat's thoughtful.
Scott BennerI bet you her perspective is probably growing significantly since your dad's issues too.
JordonAbsolutely.
Because, I mean, I'll be blunt.
He's not an easy man and never has been to be around.
Scott BennerAnd now it's harder.
JordonIt's worse now.
Scott BennerYeah.
Yeah.
JordonIt's funny because my mom's told me some people say that, like, their, you know, their parent or grandparent, whatever, was a nightmare, and then the disease hit, they became so sweet and blah blah blah.
And I'm just like
Scott BennerHe doubled down.
For you.
Yeah.
My dad doubled down when he got it.
That's terrible.
Scott BennerJeez.
That's horrible.
Yeah.
Ugh.
Well, hey.
Scott BennerAre there other autoimmune issues in your family?
JordonSee, I knew this was coming, and I was really excited for
Scott Bennerit.
Go ahead.
JordonMy mom's brother has RA and hypothyroidism.
Scott BennerMhmm.
JordonAnd their uncle my mom's uncle passed away from MS.
They had another uncle who had diabetes that was so severe, he lost now this was supposedly type two, but I have some speculation about it.
He lost both feet and died at, like, you know, way too early.
And since my diagnosis, my mom had lunch with a cousin, and her cousin was like, oh, yeah.
I have Crohn's, and my daughter has type one.
JordonSo I was like, oh, okay.
So this goes like
Scott BennerYeah.
It's a lot.
Have you considered getting the hell out of Maryland?
What's going on?
JordonSeriously.
Oh, yes.
Absolutely.
Scott BennerCould be the marshes.
There are marshes there
Jordonon here.
Yeah.
Yeah.
Yeah.
The nasty soggy air.
Scott BennerAnd what is your what's your dad's diagnosis?
JordonEarly onset Alzheimer's.
Scott BennerJust that.
That's it.
Okay.
JordonYeah.
So no autoimmune from that side of the family.
A lot of type two, but, of course, everyone these days has type two diabetes.
So
Scott BennerIt's just the thing to do.
Do you think you you well, that's in your do you think you know, there are plenty of people who would listen to this and go, I don't know one person has type two diabetes, I think.
JordonYou think?
Yeah.
Yeah.
Yeah.
Yeah.
JordonI've always been, maybe it's a cultural thing.
My dad is black, and we come from, like, a, I would say, a southern family.
Mhmm.
So, you know, all of those kind of comorbidities, I guess, as they say.
You know, it got the high blood pressure, high cholesterol, all that kind of stuff.
JordonSo type two is I mean, it wouldn't make sense to not have it.
Scott BennerYeah.
No.
I was talking to a a guy in his, like, late thirties yesterday.
He's of Spanish descent.
He was talking about how much type type two is in his family.
Scott BennerYeah.
Yeah.
It's Yeah.
It's something I I did a little, just a a quick Google here.
Alzheimer's not classified as an autoimmune disease.
Scott BennerIt is generally considered a neurodegenerative disease marked by brain changes such as beta amyloid plaques and Mhmm.
Tau tangles.
What is true is that immune systems seem to play a role in Alzheimer's.
The National Institute on Aging notes that inflammation and immune system problems have been linked to development of Alzheimer's and related dementias, and newer research is looking closely at immune dysfunction in the disease.
So, you know, there's a connection just you know, Alzheimer's isn't considered an autoimmune issue.
JordonRight.
I mean, I think you you mentioned it a lot, systemic inflammation.
Scott BennerJust the bad news.
JordonI mean, it may not something may not be autoimmune in nature, but you know?
Scott BennerI can't take obviously, you can't take Advil every day, okay, as an example.
But there are days if I take it, I just do feel better a little bit.
And Sure.
Like, I and I I just do wonder if I don't have, like, inflammation related issues that I maybe aren't autoimmune specifically, but you take that with me and my wife having, you know, thyroid and you mix it together and you get Arden.
You know?
Scott BennerYeah.
JordonThere you go.
She was doomed from a
Scott BennerDoomed from the start.
JordonDoomed from the start.
That's what I think sometimes.
Like, did you two not, like, look at each other's breeding papers before
Scott Benneryou know?
Your mom and your dad?
JordonYes.
I'll tell
Scott Benneryou right now.
If they were puppies, no one would have put them together.
JordonSeriously.
Seriously.
But I I think a lot of that has also come to light later.
You know, my uncle is twelve years younger than my mom.
So I think I don't remember him having those issues when I was younger.
JordonMaybe he did.
Scott BennerMhmm.
JordonAll but I know that it's kicking his ass now.
Uh-huh.
Like
Scott BennerYeah.
I'm sorry.
It's a lot of health issues.
It's it it overwhelms a overwhelms a family and a life.
You know?
JordonYeah.
But, you know, he's if you saw my uncle, this guy's, like, the healthiest looking person, positive.
He's a gym teacher.
Scott BennerYeah.
JordonYou know?
Scott BennerDo you think about that?
Do you think about maybe I'll just put a stop to it and not have kids?
JordonOh, yeah.
Scott BennerYou do think about
JordonI have no plans to have kids because I've just well, like, not just the diabetes, but, like, mental health, all of it.
Scott BennerWhat about the mental health part?
JordonI don't wanna have to have my own children that see me in that state or I mean, my my dad's parents are alive.
Scott BennerMhmm.
Wait.
What about your mental health?
Don't I understand?
JordonOh, mental health, sorry, just meaning, like, the Alzheimer's and stuff
Scott Bennerlike kind of stuff.
Okay.
JordonLike, that stuff does it does seem to run-in the family.
He's the first, I think, with early onset.
You know?
Everyone else has been old.
Scott BennerThis is also something you're worried about for yourself then?
JordonYeah.
Not like I'm not going crazy about it.
Scott BennerGood.
JordonI you know, you take care of yourself.
You do what you can.
You know, there's a lot of information out there.
See, I've changed my tune now.
I'm like, let's let's not play around.
The Honeymoon Phase and Insulin Adjustments
Scott BennerTwo years later, Jordan's a different person.
Yeah.
You you wake up five hours late.
You're calling 911.
You're like, something's wrong with me.
Scott BennerCome yeah.
Get over here right now.
JordonI need a helicopter.
Yeah.
Scott BennerMatter of fact, out of here.
JordonYeah.
Yeah.
So I I have kind of taken some of the lifestyle changes to heart that, you know, may lead to me a healthier life in preventing those issues.
But but to, what you were saying about kids, I don't I wouldn't want them to have to take care of me.
I wouldn't and I was saying, like, my dad's parents are alive, and it is really tough for them.
JordonLike, I I that would kinda break my heart too.
And Yeah.
And on top of that, I don't I haven't even we haven't gotten there yet, but I haven't progressed to full on type one yet.
You know?
I'm honeymooning.
Scott BennerOh, you are still in
Jordonthe honeymoon.
So, I can only imagine, like, having to deal with myself and someone else's diabetes.
Scott BennerJordan, you're having a very, very slow onset then.
JordonI am.
Scott BennerYeah.
How long has it been going?
A couple years, almost a year and a half?
JordonSo I was diagnosed in June, so it's been ten months.
Scott BennerI would also Just about.
I would also argue the six months prior to that.
Oh, yeah.
Yeah.
Yeah.
Scott BennerYeah.
Basically.
Six months prior to that.
Yeah.
Some something's going on there too, obviously.
Scott BennerOh, so what's it look like?
Are you are you using a pump?
Are you MDI?
What are you doing?
JordonI just do one shot.
They started me on basal immediately.
It was, like, seven units.
Scott BennerOh, okay.
JordonAnd so I went from I was testing, the like, all the time initially, and I was I went from, like, 3 hundreds to 100 to in the nineties, like, in two days.
Scott BennerMhmm.
Just with seven units of basil a day?
JordonYeah.
Scott BennerOkay.
JordonSo that it'd be and I was still confused about, like, type one, type two, but, like, from what I understand, that's it's it's a characteristic of maybe even though it went on for a long time, we kinda caught it early.
I have some some remaining beta cell function there.
Scott BennerYou have you have lot Lotta probably.
Is that what they're calling it?
JordonLot.
Yeah.
Scott BennerYeah.
JordonAnd I I asked my endo about that, and she was like, I don't care what you call it.
Just just you know?
Scott BennerYou have type one on a train that's taken forever to get in the station.
And yeah.
Yeah.
Did they mention GLP, like, low level GLP to help?
JordonShe was convinced that I would disappear if I started on a GLP and lost any weight, even if it was a microdose, I guess.
Scott BennerOkay.
JordonI don't know.
But I I asked about, god, can I say it correctly, teplizumab or whatever it is?
Scott BennerYeah.
Yeah.
Yeah.
TZL.
JordonThe yeah.
Mhmm.
The the drugs that prolong the honeymoon, and she was just I don't know.
Maybe it was the the a one c of fourteen point five that she was just kinda like, I think you're maybe a little a little too far gone.
Scott BennerShe's like, the train is going slow, but it's pretty far out of the station.
JordonIt's here.
Yeah.
Yeah.
Gotcha.
So she said just continue with that.
JordonAnd and so I was actually having a lot of lows because I exercise like crazy as well.
Yeah.
So I was just always always low.
And back in February, couple months wait.
Yeah.
JordonBasically, last month, I was like, I can't keep doing this.
I'm at, like I just had food.
I shouldn't be at 55 and, you know, arrow down.
Scott BennerSo on days when you're exercising hard, even though seven units of basal are too much?
JordonYes.
Scott BennerYeah.
It's interesting.
JordonYeah.
It's confusing to me.
Scott BennerI would be so I have to tell you, not a doctor, not advice.
I would be super interested to see what micro dosing GLPs did for you.
Yeah.
2.5 is the smallest pen I'm talking about, way less than that.
And, like Yeah.
Scott BennerJust to see what what like, if if there's a if there's a tipping point in there where it could affect your blood sugar without affecting your hunger.
JordonI would like to see that too because I I don't know.
It just doesn't I tried to stop taking insulin, which I I know you're not supposed to do, but I was really desperate here because I was I was getting scared.
Scott BennerBecause of how low you were getting?
JordonYeah.
Like, it was every day at the same time, 55 double arrow down.
Like and I didn't believe it.
I was like, I need to finger prick because
Scott BennerAnd sure enough.
JordonThis is probably wrong, and I was in the forties every time.
Scott BennerYeah.
You probably have the basal running, and all of a sudden, your pancreas is like, hey.
I can help now.
JordonYeah.
I'm here too.
I'm still going.
Yeah.
Yeah.
JordonWhich also I my c peptide rebounded after three months.
Scott BennerInteresting.
JordonIt went from being low to being normal.
They they said that's yeah.
You're honeymooning, and I was like, okay.
So I stopped taking the insulin.
Yeah.
JordonIt was February because I went to a Super Bowl party, and I had fun eating, let's just say.
And I I left the party at, like, my blood sugar was at, like, two seventy five.
And I was like, oh, yeah.
That's that's pretty high, but, you know, the basal always kicks in.
And whatever beta cell function I have left kicks in usually and brings me back down.
JordonAnd then I woke up the next morning, and I was still at two seventy five.
Scott BennerOh, and that did not work.
You didn't get that one.
Maybe it was because the Super Bowl sucked that your body didn't wanna help.
JordonRight.
It was just so upset.
Yeah.
Yeah.
But, yeah, I was like, okay.
Scott BennerNot like that beautiful Super Bowl that my Eagles put on the year before.
JordonThat's right.
Scott BennerWhere they trounced the Chiefs and made everybody in the country happy except for Kansas City.
JordonSee, I am not an Eagles fan, but I'm with you on that one.
Scott BennerIt's okay.
JordonI enjoyed that game.
Scott BennerI understand how you feel.
JordonWas a great game.
Scott BennerI understand how you people feel down there.
I know what's going on.
Don't worry.
JordonHate the Chiefs even more.
So
Scott BennerEveryone does.
And it's it's Yeah.
It's because of what's his name.
JordonOh, yeah.
What's his name is just yeah.
Yeah.
We gotta get him off, all the commercials.
Scott BennerI've never seen such a good quarterback get hurt and everybody go, okay.
I'm alright with it.
Yeah.
Yeah.
It It's his time.
Scott BennerHe's he's done he's done a thing.
He's he's made people not like him somehow.
It's interesting.
JordonYeah.
Yeah.
For sure.
Scott BennerYeah.
Talented guy.
But nevertheless yeah.
Yeah.
It's the crybaby stuff, don't you think?
JordonIt is.
That's and people don't wanna hear that after you've gotten everything you could ask.
Scott BennerOne yeah.
One did did you see in those, the betting scandals, especially around basketball?
They're talking to the referees that have been involved in it, And a lot of them are saying, like, look.
Nobody directly comes and tells you we want the Lakers to win, for example.
You know, we want we want we want this team to win.
Scott BennerWe want that team to win.
But he's he's like, you understand what's good for the league, and you make those calls, and then the league assigns you to more games.
He's like, so nobody ever asks, but it kinda gets done like that.
Yeah.
And I'm telling you that that, the year before, like, like, three Super Bowls ago, I think, one, three Super Bowls ago, you watch that AFC championship game.
Scott BennerIt feels like the ref is like, I am gonna throw this flag until the Chiefs win.
And Yeah.
Like, and it was really does.
It really does.
I mean, from an outside perspective, I I not I I had no skin in the game.
Scott BennerLike, I'm just watching it.
I'm like, man, it just feels like that guy's like, look.
If I gotta throw this flag on the ground one more time to make sure the Chiefs go to the Super Bowl, then that's what I'm gonna do.
Damn it.
JordonI'm doing it.
Scott BennerBecause Taylor Swift's boyfriend has gotta be successful.
And That's right.
JordonYeah.
Maybe everyone's just like, hey.
My daughters are really big Taylor Swift fans.
Scott BennerYeah.
Yeah.
I would love to see him.
You know, right at the Chiefs making the Super Bowl, Taylor Swift will come.
I'll bring my daughter.
Scott BennerIt'll be a whole and I don't think it's maybe conscious or not.
Like, I'm just saying, trust no one.
And
JordonNo.
Yeah.
I'm a huge conspiracy theorist, Scott.
Scott BennerI'm not at all.
I don't think that's a conspiracy.
I don't think that's a conspiracy to think that, like
JordonIt's just right in front of our faces.
Scott BennerSo feel like you understand what is expected.
You have sway over it.
You make sway.
People then like you.
You get more things.
Scott BennerLike, I you know, it just feels like feels like that's kinda how the brain works.
There's a a pleasure center you're you're feeding a little bit.
Do you wear CGM?
JordonI do.
So that's another thing.
Praise Kaiser or praise this doctor.
You know how they use the language that the medical language that no one understands, and it they don't mean anything by it, but everyone was like, Humalog, Basal, CG, and I'm just like, yeah.
Scott BennerRight.
JordonWhatever.
Fine.
And so after finger sticking, like, 50 times a day for a week, I talked to my this was when the, the GAD results came back, and she was like, yeah.
It looks like you have type one.
And she was like, have you gotten the CGM yet?
JordonAnd I was like, you mean the finger stick thing?
Like, yeah.
I have that.
I'm testing.
And she was like, no.
JordonA CGM, it, you know, goes on your arm and stay and I was like, oh, that that might be nice to have.
So I don't know.
Yeah.
This was weird because I got diagnosed over the phone, went to the pharmacy, picked up my you know, it wasn't a whole thing.
So a lot got lost in a lot of information got lost on its way to me, I guess.
JordonAnd, but, she got me on the g seven, the Dexcom g seven right away.
Podcast Impact and Final Thoughts
Scott BennerBecause you brought this up, may I just plug the website for a second?
Juiceboxpodcast.com/interactive-dd.
It's also in the menu.
You can just click on the menu at the top right.
It's interactive defining diabetes.
Scott BennerIt's, like, all the episodes from defining diabetes, but, like, broken down, like, just very simply.
JordonUh-huh.
Okay.
Scott BennerEnglish, Spanish, French, German, Hindi, a bunch of different languages if you wanna go look at it that way.
So, basically, like, I'm looking top left a one c, your ninety day big picture report card, though it doesn't show the daily roller coaster of highs and lows.
You click on it.
It says a blood test measuring average blood glucose levels over the past two to three months via glycated hemoglobin.
And then you can if you want to click off of it or click listen to episode, it'll take you to the defining diabetes episode that defines a one c.
JordonAnd Oh, crap.
Scott BennerUh-huh.
And at the top, there's a little button that says challenge.
And if you click on challenge and then you hit start, it starts asking you questions.
An early morning increase in blood glucose caused by natural counterregulatory hormones.
Dawn phenomenon, algorithm, c peptide.
Scott BennerI say Dawn phenomenon.
Yes.
And then it goes to next one, and there's this little bar that runs down.
I think it takes, like, ten seconds.
It gives you time to answer to get to the next one.
Scott BennerSo you can play, like, a quiz to learn the the definitions around diabetes.
JordonWow.
Scott, you're a digital creator if I've ever seen one.
Scott BennerI am on it.
You should see.
I just basically I just basically sit here now recording the podcast and working on the website, trying to turn the website into this great thing, which I think it is.
But now I'm about to start starting now to try to get the word out about it, and I'm gonna start with you.
So interactive dash d d if you wanna take the defining diabetes challenge or check out some terms that you might not know the definitions to.
Scott BennerThanks.
JordonThat's perfect.
Scott BennerLook at me.
JordonYeah.
I I I used my own craziness to kinda learn everything I could.
Scott BennerYou know, I tell this story constantly, but, like, the first time somebody on the podcast said, like, I don't I somebody said basil to me, I didn't know what the hell that was.
Like, you know, like, I didn't even know I was using basil insulin, but I was apparently.
And and Yeah.
If you don't have context for these words, it all be it's more difficult.
JordonSo I kept hearing the word bolus, and I was like, you mean, like, a bolus of food that, like, you swab,
Scott BennerBolus you is my bolus dirty?
No.
No.
No, honey.
It's in the sink.
Scott BennerWe already cleaned it.
Yeah.
Yeah.
Yeah.
Yeah.
Scott BennerI you people run out all the time.
I'm hungry all the time.
It's like I got diabetes.
I'm hungry all the time.
Hungry all the time.
Scott BennerGo figure out what amylin is.
There you go.
Like, they now now you have more context.
You can build bigger stories for yourself and and maybe change your pathway and understanding and get yourself to something better.
I don't wanna sound like a
JordonThat said, I had, no clue that, I think you and Jenny were talking about it that, like, the diabetes effect on your pancreas also extends to, like, hunger hormones and signaling.
And was like, oh my god.
That makes
Scott Bennerso sense.
Yeah.
Because you are a you're a hungry little monkey sometimes, aren't you?
JordonOh, yeah, man.
I'm I'm thinking about food all day long.
My god.
Let's call
Scott Benneryour episode hungry little monkey.
Can we do that?
No.
I don't I don't know.
We'll figure it out.
Scott BennerI I what the other one was good too.
What was the other title I said?
JordonOh, shoot.
Something about lungs.
Scott BennerOh, no.
That's because I know your last name and no one else knows it.
And we're not gonna share we we're not gonna share your last name, so I can't use it.
Because it what do it's it's on it literally is without context.
So I'll figure something
Jordonout.
Yeah.
Scott BennerDon't you worry.
Yeah.
Everything's gonna be fun.
JordonYeah.
Yeah.
Yeah.
I gotta find some more interesting stuff
Scott Bennerto talk about.
What what else what what made you wanna come on the podcast?
JordonThe shock and the very sudden, change in my lifestyle that was forced upon me.
Just kinda I was like, I have to like, I can't be the only one, so I gotta find somebody.
And I I found the podcast because my mom was like, I'm sure you could find a podcast that yeah.
So I looked up type one diabetes, and the first episode I found was the the dirty toilet bowl.
I don't know if you remember that one, but the the guy was, like, 25 and diagnosed around the same age.
JordonAnd, like, seemed like he noticed a lot of the same signs.
And I was like, I don't know.
As time has gone on, I have kept, like, putting pieces of the puzzle together, listening to the podcast, and, you know, that's helping me piece things together even more.
So I I really wanted to just kinda come on and and
Scott Bennertell myself.
Glad you did.
And you're talking about
JordonYeah.
Scott BennerHe had an there was an overgrowth in his toilet bowl because of all the sugar he was dumping.
Yes.
JordonYes.
And I actually had a friend see, we have, this mutual friend who has type one, and they've known each other since they were, like, really little.
And I think because she mentioned the black ring in the toilet bowl to me.
I was like, you know, whatever.
I sorry.
JordonI didn't clean the bathroom.
You know?
Now hindsight, she was like, yeah.
I was actually wondering, like, if someone in the house had diabetes because I know that.
And I was like,
Scott Bennergoddamn.
I never heard Yeah.
JordonBut, yeah, just funny stuff like that that I heard when I first started listening to the podcast, and I was like, no way There's someone who had the same thing that I thought was so bizarre happened to them.
Yeah.
Yeah.
Scott BennerIt happens to people all the time.
So and and and where else are you gonna hear about that?
No one's gonna tell you about that.
That's not a not that's not a thing you're gonna read in a book or even
JordonNo.
We don't sit around the dinner table talking about our our
Scott BennerHave you all noticed the black ring in the toilet bowl?
Seems like it seems like something's growing in there, doesn't it?
It's something you guys okay?
Everybody alright?
JordonI was, you know, having doing my own little science experiment.
That's
Scott Bennercan I tell you something I was thinking about the other day?
I think this kind of I think it'll dovetail nicely into this.
So while you were talking earlier, I watched a, this is gonna here's a lot of words nobody's gonna care about.
Tacodermis smaradensis.
It's a small Japanese grass lizard with a long tail.
Scott BennerI have a a a I have a colony of them living in a tank over here.
And, one of them was trying to get up on this big leaf, like, running but slipping.
It looked like it was on a treadmill for a while.
It was absolutely absolutely delightful.
This is not why I bring them up.
Scott BennerBut I I was looking at them the other day, and there's females in there, and they're gonna start laying eggs pretty soon.
And lizards are pretty simple animals.
Right?
Like, they need calcium.
And for some reason in captivity, they cannot get calcium the way they live in captivity, the way they get it out in the world.
Scott BennerSo when you give them food Yeah.
You dust their food with just calcium.
Dust.
Right?
Yeah.
Scott BennerAnd if you don't do that Yeah.
They don't die right away.
They don't die in a week or a month or, like but their bodies slowly are lacking the nutrients, the building blocks, the necessities to keep them healthy.
And then if the females lay eggs, that uses up most of their calcium stores to create the eggs, and then they'll sometimes pass after that if they don't have enough calcium.
Or they can get bone, like, something called metabolic bone disease.
Scott BennerLike, there's all these things that can happen that will lead to their death, and it's just about calcium.
Removing yourself from the the I can't believe I said it correctly.
Tacidermis smaradens.
I I never can say it out loud, I got it right this time.
Thank you.
Scott BennerWe putting them aside, like, there are so many little ingredients inside of you that you need to be healthy.
And you can take some of them away and not die, but it doesn't mean you're optimal.
And, you know, the Right.
JordonAnd you might not notice it for a long time.
Scott BennerThe lizard doesn't die the first day it doesn't have the calcium.
But the day that it rears its head, it's too late then.
And you seem okay every day between we stopped giving the lizard calcium and it died.
It seems I swear to god, they seem fine right up until they fall over dead.
And I think Yeah.
Scott BennerI don't know.
I was thinking about that the other day, and I don't know that people associate simple things like vitamin d, you know, your insulin.
These are things that are additive to your body that you need to add in in the right amounts to put yourself in an optimal situation.
And I it's hard to think about it that way, but keeping the lizards simplifies it for me.
And and
JordonYou understand it better.
Scott BennerJust for having watched one of them
JordonImplementing it on a small scale.
Scott BennerFor watching one of them have lived well with it and healthily, and, you know, I've had animals die too, and you don't know why exactly.
But I don't know.
I just I wish everybody Arden's friend called the other day.
They're on the phone.
She's she's of Indian descent.
Scott BennerShe's brown person.
She just moved to, like, somewhere really cold, and she started talking about issues on the the the FaceTime talking.
The FaceTime.
Look at me.
Like, a thousand years old.
Scott BennerYeah.
But bring the box on so I can see, I could see the Merv Griffin show.
JordonBring the box.
Scott BennerSo I'm talking to her, and she's she's feeling a little run down.
I said, are you taking vitamin d?
And she goes, no.
I'm like, you're a brown person living where there's no sun.
Please take vitamin d.
Scott BennerWhat are you doing?
JordonYour body's not too happy with you.
Scott BennerSo I said I said, what are you doing?
And so I'm texting her a link.
I'm like, you buy this right now.
Take one every day.
Don't make me come up there and yell at you.
Scott BennerThere's simple thing you just don't realize until, you know Yeah.
It's too late.
Or, by the way, it's never deficient enough to actually hurt you significantly, but you have a lessening of what your health could look like throughout your entire life.
You know what I mean?
Yeah.
Scott BennerAnd and just for for what?
Mhmm.
Like, eat an egg once in a while.
Have a little bit of red meat.
Have some chicken.
Scott BennerDo the thing.
Take a vitamin.
It's Jordan, please.
Are you taking vitamins?
JordonYeah.
Good.
Scott BennerGood job.
Thank you.
I appreciate that.
I appreciate that.
Every day, it's not hard.
Scott BennerThey're right in front of me.
Right here.
I keep them on my desk.
JordonIt's funny.
I actually listened to the supplement episode recently, and, and started being a little more regular with them and taking digestive enzymes and all
Scott Bennerthat stuff.
Better?
JordonYeah.
Good.
I do.
Yeah.
I was having a not quite sure if I might be having my second of the the autoimmune trifecta flare up now, but I feel like I don't digest food anymore.
Scott BennerWell, you do you think it's celiac?
Do you think it's just you having losing some of that functionality from your pancreas with digestion?
JordonOh, the latter.
Because celiac, from what I understand, is would be a little more obvious after eating
Scott BennerStuff like that.
JordonGluten in it, and and I don't necessarily have those symptoms.
Care
Scott Bennerof It's not that difficult.
Look.
Really look.
Listen.
JordonI'm just
Scott BennerI'm just taking out my vitamins right now.
I'll put them on my desk so that when you and I are done, I can take them.
I can I tell you the a funny vitamin story?
Because we are we're getting into it now.
Okay.
JordonYeah.
Do it.
Scott BennerSo I'm driving I don't know.
I think I was driving home from Georgia when Arden was in school there.
Mhmm.
And, I bring my vitamins with me.
I'm a I'm an I'm a I'm one of those old people who just throws a pill in their pocket.
Scott BennerI have no problem with it.
I'm driving home, and I think, oh, I haven't taken my vitamins.
I just ate something.
I'll take my vitamins now.
And I take them, but I must not have drank enough with them and didn't realize it.
Scott BennerSo
JordonYeah.
Scott BennerIt's a half an hour later.
This is such a weird this is one of the weirdest experiences of my life.
I burped, and this powder cloud came out of my mouth.
And I thought
JordonI've had the metamucive burst.
Scott BennerThought, oh my god.
I'm gonna die.
This is it.
Like, right like, right here.
Oh, like, maybe I should pull over so I don't crash my car.
Scott BennerWhen when obvious imminent death happens to me next.
And I panicked for a second, and I was like, what the hell just happened?
And then it took me a minute, and I put two and two together, and I'm like, I don't think I drank enough with the vitamin if the capsule opened up in my way.
I don't know where.
Like, I'm not good enough with, like, with how the body is designed to actually, like
JordonYeah.
Like, in your esophagus?
Scott BennerSub.
Right?
Like, that it's insane.
But I was, like, puff the magic dragon there for a second.
Yes.
Scott BennerIt's like, oh, look at this.
It's really great.
Nevertheless, drink a lot of water with your with your pills.
That's what I wanted to say.
JordonYeah.
Good note.
Scott BennerGood note.
Good note.
I'm older than you by, like I'm, like, twice as old as you.
So do you like the information from the podcast enough to put up with listening to an old man's podcast, or does it not feel that way to you?
JordonFor sure.
I think well, my, my style of, like, communication is a little different, I think, from a lot of the younger people I'm around.
So I I feel like I I do kinda click with, like, your sense of humor and stuff a little bit more, so I I don't have a problem listening to it.
And I like the messages.
You know, every now and then I I'm like, oh, Scott.
Scott BennerYou know?
Here he is.
JordonBut but, no, I I really enjoy it.
I think the way that you because the way people talk online, it's like, oh, this guy telling everyone to, you know, just take a bunch of insulin and blah blah blah, but you've repeated, you know, over and over about how like, that's not what you're telling me.
Scott BennerRight.
JordonDo you encourage people not to just take your word as law?
And, that's that's exactly how I think.
Like, I'm not just going to settle for for one opinion, but I'll absolutely take good sounding advice and and try to look for
Scott Benneron me online?
I don't look.
Is that happening still?
JordonActually, you know what?
What I saw might have been from a couple
Scott Benneryears ago.
There was a couple of years ago where, like, that I think people, like, misunderstood the idea of, like, that bold with insulin message.
And, like
JordonYeah.
It was seemed like it was around, like, heavy coke.
Scott BennerYeah.
But, yeah, extra crazy during COVID.
JordonYeah.
Scott BennerYeah.
Yeah.
JordonYeah.
Well, I mean
Scott Benneryeah.
Well, no.
Listen.
A lot of listen.
You don't realize how much of the crazy gets focused on, like, day to day life stuff.
Scott BennerAnd then when you take away the day to day life stuff, they got extra crazy, you gotta point it somewhere.
JordonYeah.
Yeah.
Well, and what do they call those people that are supposedly so pissed off with you, but they probably listen to every single episode and they Yeah.
Scott BennerI'll take it.
JordonYeah.
Scott BennerI don't care.
I don't I Yeah.
Possibly mean couldn't mean less to me.
I I I need the downloads.
We're good.
JordonAlright.
Scott BennerIt's a pretty it's a pretty simple system.
You know what I mean?
You listen.
I sell ads.
I get to keep making my podcast.
Scott BennerSo Yeah.
Yeah.
Keep listening.
Thank you.
JordonWhole life.
Scott BennerHave you ever seen the lion king?
JordonOh my god.
Scott BennerDo know Arden's never seen the lion king?
JordonYeah.
No way.
What is
Scott Bennerhow old
Jordonare you?
Scott BennerShe'll be 22 in a couple months.
JordonOh my god.
Yeah.
Scott BennerShe's try we try so hard to get her she's like, I don't care.
I'm like, okay.
So she really
JordonI mean, she'll feel differently after she fight.
It's inevitable.
It's inevitable.
Scott BennerI don't think so.
JordonShe'll be like, what's wrong with
Scott BennerShe's very stubborn.
JordonThis.
Yeah.
Scott BennerVery, very stubborn.
JordonI love hearing the way that you guys you guys talk to each other.
It's hilarious.
Scott BennerI wish she'd come on the podcast more.
She's busy.
JordonI was like
Scott BennerGoing to college.
JordonI was surprised to hear it how she spoke about diabetes in the podcast, but I understand it, and I think it's really funny.
Scott BennerYeah.
She really is, she's got a different way of thinking about it.
That's for sure.
It's her own way.
So I I think it's a good I think it's a good lesson, though, to hear that, you know, whether you're an adult or a person who's, you know, taking care of a child with diabetes, your expectation of how people are gonna deal with things or think about them or even feel about them, your expectation has probably very little to do with how they're actually going to respond.
Scott BennerSo
JordonOh, for sure.
Yeah.
Yeah.
Because I thought my one close friend with type one when I was diagnosed was like, oh my god.
I'm so excited to have, you know, someone else.
But then but I really like talking about it, honestly.
JordonMhmm.
And maybe that's because I'm so new, and and she's been in it for a decade.
But it it's just I I'm not met with the same energy, you know
Scott BennerShe don't
Jordonabout it and Yeah.
She doesn't care.
Yeah.
And, and that's fine.
Scott BennerYeah.
No.
I just think it's I think it's valuable because I think a lot of times either people can judge themselves against others.
Like, I guess this is how I should feel about it or this is how I should think about it.
Or parents, I think, put their feelings about it onto their kids.
Scott BennerThey're like, well, this is how they're gonna deal with it or I know they're gonna grow up fine.
Like, you you don't know how anybody's gonna grow up with Like, this is not a Right.
This is not a preplanned thing.
Just because it's the way you handle it doesn't mean it's the way they're gonna handle it.
You might be better or worse at it than they are or will be, and there's not a lot you can do about that.
Scott BennerYou you know?
JordonNo.
Not at all.
Because I mean yeah.
Yeah.
Yeah.
JordonI'm sorry.
I just saw it's a long time.
Scott BennerYeah.
Yeah.
JordonBeen talking for a long time.
I'm sorry.
Scott BennerNo.
Don't be sorry.
What are sorry about?
But we will we will wrap up, though.
This was lovely.
Scott BennerI do really appreciate Alright, man.
Hold on one second for me.
You were terrific.
Thank you for doing this.
I really appreciate it.
JordonThank you, Scott.
Yeah.
Scott BennerToday's episode of the Juice Box podcast was sponsored by the new Tandem Mobi system and Control IQ plus technology.
Learn more and get started today at tandemdiabetes.com/juicebox.
Check it out.
This episode was sponsored by Touched by Type one.
I want you to go find them on Facebook, Instagram, and give them a follow, and then head to touchedbytype1.org where you're gonna learn all about their programs and resources for people with type one diabetes.
Scott BennerToday's episode of the juice box podcast is sponsored by the Eversense three sixty five.
You can experience the Eversense three sixty five CGM system for as low as $199 for a full year.
Visit eversincecgm.com/juicebox for more details and eligibility.
Okay.
Well, here we are at the end of the episode.
Scott BennerYou're still with me?
Thank you.
I really do appreciate that.
What else could you do for me?
Why don't you tell a friend about the show or leave a five star review?
Scott BennerMaybe you could make sure you're following or subscribe in your podcast app, go to YouTube and follow me, or Instagram, TikTok.
Oh, gosh.
Here's one.
Make sure you're following the podcast in the private Facebook group as well as the public Facebook page.
You don't wanna miss please, do you not know about the private group?
Scott BennerYou have to join the private group.
As of this recording, it has 74,000 members.
They're active talking about diabetes.
Whatever you need to know, there's a conversation happening in there right now.
And I'm there all the time.
Scott BennerTag me.
I'll say hi.
Check out my algorithm pumping series to help you make sense of automated insulin delivery systems like Omnipod five, Loop, Medtronic seven eighty g, Twist, Tandem Control IQ, and much more.
Each episode will dive into the setup, features, and real world usage tips that can transform your daily type one diabetes management.
We cut through the jargon, share personal experiences, and show you how these algorithms can simplify and streamline your care.
Scott BennerIf you're curious about automated insulin pumping, go find the algorithm pumping series in the Juice Box podcast.
Easiest way, juiceboxpodcast.com, and go up into the menu.
Click on series, and it'll be right there.
Hey.
What's up, everybody?
Scott BennerIf you've noticed that the podcast sounds better and you're thinking, like, how does that happen?
What you're hearing is Rob at Wrong Way Recording doing his magic to these files.
So if you want him to do his magic to you, wrongwayrecording.com.
You got a podcast?
You want somebody to edit it?
Scott BennerYou want Rob.
#1867 Dexcom CEO and CTO on G7, G8, and What’s Changing
Dexcom CEO Jake Leach and CTO Peter Simpson discuss G7 sensor performance, gooseneck fixes, adhesive improvements, customer support, replacement policies, and self-calibrating G8 technology shaping diabetes care at scale forward.
Key Takeaways
- Dexcom formed a Customer Advisory Council to gather direct feedback on user experiences and improve communication.
- The "goosenecking" sensor deployment issue was identified and heavily minimized, with further improvements coming soon.
- Day one sensor inaccuracies are often caused by the body's natural wound-healing response creating temporary interference.
- Dexcom is revamping its support systems and replacement policies to reduce user friction while preventing open-market resale fraud.
- The upcoming Dexcom G8 sensor will feature multi-analyte capabilities and a proprietary self-adjusting algorithm to reduce variability.
Resources Mentioned
Welcome & Introductions
Scott BennerWelcome back, everybody. (0:07) Today, I'm speaking with Jake Leach, president and CEO of Dexcom. (0:12) Jake is joined today by Peter Simpson. He is the executive vice president and chief technology officer. (0:18) Jake, Peter, and I are talking about the goosenecking issue with g seven, different ideas around their support and replacement policies.
Scott BennerWe'll talk a bit about accuracy around g seven, a little bit about fifteen days, some adhesive stuff, and I even sneak in a question at the end about the g eight sensor coming up sometime in the future, but probably not as far away as you think. (0:41) While you're listening, please remember that nothing you hear on the juice box podcast should be considered advice medical or otherwise. (0:47) Always consult a physician before making any changes to your health care plan or becoming bold with insulin. (0:53) And if you're new to the podcast, check me out at juiceboxpodcast.com. (0:58) We have content for everybody living with type one diabetes, adults and caregivers alike, juiceboxpodcast.com.
Scott BennerAre you newly diagnosed? (1:06) Check out the bold beginnings series. (1:09) And if you're working on making things better for yourself, check out the diabetes pro tip series. (1:14) There's that and much, much more available at juiceboxpodcast.com. (1:18) Listen on Apple Podcasts, Spotify, or wherever you get audio.
Jake LeachHey, Scott. (1:26) Jake Leach. (1:27) Pleasure to be here. (1:28) I'm the president and CEO of Dexcom.
Scott BennerJake, I appreciate you coming back. (1:31) You brought somebody with you today. (1:32) Who is this?
Jake LeachThis is Peter Simpson. (1:35) I'll let him introduce himself. (1:36) But one thing I'll tell you is that so Peter and I have been working together at DexCom since the day I joined, and he is one of the the founders of our technology, an amazing person, but also an incredible scientist and engineer. (1:51) And really, a lot of the the advancements you've seen, he he has led almost all of them when it comes to sensor performance.
Scott BennerOh, wow. (1:58) Well, it's nice to meet you, Peter. (1:59) Also, there's no video here, Peter, so this is just audio. (2:01) You don't have to sit up and smile the whole time if you don't want to.
Peter SimpsonAlright. (2:06) Awesome. (2:07) Scott, it's a pleasure, meeting you. (2:09) My name is Peter Simpson. (2:10) I'm the chief technology officer here at DexCom.
Peter SimpsonAnd, as Jake mentioned, I've been here for going on twenty four years. (2:16) So I've been involved in all of the generations of the product and really seeing the evolution both of CGM and but also the impact that all these new technologies have had on people with type one diabetes. (2:27) So it's been amazing to be a part of that evolution and really excited about the future as well.
Scaling & Customer Focus
Scott BennerI I would imagine too you both have a perspective that is almost uncommon in a in a business like this. (2:39) Right? (2:39) I mean, you're from the beginning till now, you guys have seen it all. (2:42) You have kind of an institutional memory of it. (2:44) How does that help you?
Jake LeachIt's, you know, it's it's it is really a significant benefit. (2:50) One, because, you know, we we're intimately familiar with all the things that have led to the success of the company and the success of the technology. (3:00) And, you know, it's not like you're trying to learn that while also trying to figure out where the next, you know, place we wanna go is. (3:06) And so I think that is that is a significant benefit. (3:09) And also, you know, when it comes to my role, a big part of what I do is, making sure that we've got the right culture within the company.
Jake LeachAnd, there's some parts of our culture that have made us successful over time that we wanna keep. (3:23) And then there's parts of the culture you wanna continue to evolve, particularly as we scale. (3:28) It was very different days when we were Peter and I actually used to go down watch them ship the sensors out the door for that day to the users. (3:35) Right? (3:35) And we're talking about hundreds of sensors.
Jake LeachRight? (3:38) And now, you know, we're shipping millions and millions of sensors every week. (3:42) So, you know, it's very different than the things that are important when you scale. (3:45) You need to, you know, have those capabilities. (3:47) And so and and how you look at it is it all continuously improving and all that.
Jake LeachSo that that is a a big part of, you know, what I do, and and I lean on the history and the experience. (3:57) And the other thing too is things aren't always easy. (3:59) I mean, we've we've done it's been many decades of very hard work and really persevering through lots of challenges. (4:05) You know, when things happen and don't go as planned, you kind of fall back on the, yeah. (4:10) This we've been here before, and this is how we're gonna fix
Scott BennerWhat's it like to try to keep that culture of patient first worrying about people, worrying about customers, but then scaling up in the way that you did? (4:22) I don't you'd talk about how many sensors you ship a year now versus back then?
Jake LeachWell, we're well north of a 100,000,000 sensors. (4:29) We have more than three and a half million active users, you know, in in using the sensors today, and that number grows. (4:35) You know, we grew that by 20% last year in terms of the number of people that use Dexcom every day. (4:39) So and we're gonna continue to grow. (4:41) It you know, it's actually it's interesting.
Jake LeachThe the patient centered focus for DexCom, because it's so core and it's always been there, we've always been a customer focused company, that's actually the easy part in terms of it. (4:54) I don't you know, you don't have to convince anybody. (4:55) People come here because they are passionate about our mission, and they they want to they know, you know, what we're trying to achieve for our users. (5:03) I think the hard part is making sure we always show up that way. (5:07) Like, the intent is there.
Jake LeachRight? (5:09) The intent is to always be user focused and we, you know, meet the needs of the user. (5:13) But when you scale and grow, you have to start changing the way you do things to better match the scale. (5:19) And there's lots and lots of examples from manufacturing all the way through customer support where we need to keep evolving and improving. (5:26) And we can't, you know, keep doing things that what worked for a smaller number of users doesn't work when you get to the large number of users for lots of different reasons.
Jake LeachSo I think that's the part that is harder but very achievable. (5:38) You know, as the new CEO, it's like, is something we're gonna show up. (5:41) We're not adding to people's burden. (5:42) We're relieving the burden of diabetes or at least helping to relieve that. (5:46) We should never be adding to your burden as a user.
The Customer Advisory Council
Scott BennerCan that be a pothole? (5:49) Like, you're you're focused on who you are, you know what you think you're doing, but somehow it gets away from you and you don't realize it right away? (5:55) Or is it a thing you see, like, gotta get to that, but we're so busy? (5:59) When those things ebb and flow, how do you keep your eye on them when they're moving? (6:04) You know what I mean?
Scott BennerBecause your intention's the same. (6:06) So yeah.
Jake LeachI I think it's really the feedback mechanisms. (6:10) That's the number one thing, that helps you understand how you're doing is real the appropriate feedback mechanisms. (6:14) And it's actually one of the reasons why we started the customer advisory council is because we have many feedback mechanisms we've developed over time. (6:21) But I was, you know, wanted to hear more from community around, you know, all the things that we're doing well that we can double down on, but also the things that we're not, know, where we're not meeting users' needs, where we're not showing up the way our users want us to. (6:35) And so that we put the advisory council together, which you're a participant in, Scott, which I really appreciate you doing that.
Jake LeachAnd it was you know, it's a diverse group, and we wanted to hear straight talk, like, are we doing well? (6:46) What are we not? (6:47) So that we improve it. (6:48) And the goal is to make sure that the feedback from that council shows up in the actual experiences our users are having, whether it's product or support or anything around your experience with Dexcom. (6:59) Wanna make sure it's meeting everybody's needs.
Jake LeachYou gotta have those mechanisms.
Scott BennerWell, I can say for sure that you wanted to hear the feedback because I didn't just bring my own. (7:07) I brought feedback from the audience, which was pretty extensive, and I was invited back to the second meeting. (7:12) So I figured you actually wanted to hear about it.
Jake LeachIt's working.
Scott BennerSo so that's what we're here to talk about a little bit today. (7:18) Right? (7:18) You guys are putting out a report based on these meetings. (7:21) Can you explain to people what all this is and and what did it turn up?
Jake LeachYeah. (7:26) Hey, Peter. (7:27) Do you wanna take do you wanna take that one?
Peter SimpsonYeah. (7:29) You know, we've had two of these meetings so far. (7:31) First one is to make sure that we were listening, and then the second one was where we kinda played back what we were hearing and gave a little bit of information about how we were, responding to some of those commentary. (7:42) We're about to publish this, report out that basically captures that and and talks about some of the commitments that we're making as a company to our customers about the, product performance, the transparency, the communication, and, you know, even things like our, replacement policy and and and such. (8:01) Mhmm.
Peter SimpsonYou know, that I think it's very important for us to listen to our customers, but also to know that they they are listened to. (8:08) And I think that this is just a piece of that that we can communicate out to to make sure that they know that we are listening to them and really want their feedback.
Addressing Goosenecking
Scott BennerYeah. (8:17) How can you kind of close the time between when the customer realizes something's going on, but you don't realize it? (8:24) And then you have to react and, I I would imagine, figure out what to do and move forward, and there's no communication in that time, which I don't even know what you would be communicating. (8:32) I use the like, the goosenecking is a great example. (8:34) Right?
Scott BennerLike, think Arden was using g seven, like, maybe week one. (8:39) And one of our first sensors, it happened to. (8:43) And I don't know. (8:43) I just I said, call it in. (8:45) Put on the next one.
Scott BennerI didn't even think twice about it, really. (8:48) I just and then suddenly, you hear other people talking about online. (8:51) But how long does it take you to hear rumblings? (8:53) Like, and what would you say to people who would say, well, why is that not something you already knew was going to happen? (8:58) How does something in a manufacturing supply chain like, how does that happen?
Scott BennerBring people into that idea.
Jake LeachSo what I would say, Scott, first of all, is for that particular deployment issue, we saw it we see you know, because our devices are connected and we constantly monitor feedback from the performance, we actually saw it start increasing early in '25. (9:20) So beginning of last year, we started seeing it increasing, and we saw that signal. (9:24) What we didn't immediately understand is what was causing it. (9:27) So we jumped on it, and the the Tiger team has put together. (9:31) And specifically, I'll let Peter describe a little bit about what we found there.
Jake LeachBut that was an example though of something that we monitor. (9:38) But what we've also continued to do is that experience taught us that there's other aspects of the product that we can be monitoring in real time in the field. (9:49) And so we've continued to enhance our analytics capabilities so that with all of if you think about data technologies, artificial intelligence ability to spot patterns that maybe we don't immediately spot as a data scientist, that is some of the technology we're trying to apply to be able to monitor performance because, you know, we have so many users. (10:10) We can see when something is going out of out of range and then we can jump on it. (10:16) But that one sensor deployment issue challenge that we had, happy the team jumped on it, happy that, you know, we've corrected it, moving forward, but that was a hard one.
Jake LeachPeter, do wanna describe a little bit about that?
Peter SimpsonYeah. (10:28) So, what you're referring to is is I think you've called it gooseneck. (10:32) This is where our sensor during the deployment process, it brings the sensor and the needle down to under the skin and then bring retracts that needle, leaving the sensor behind. (10:42) What happens in those cases is the sensor gets pulled back with the needle, and then it's no longer in the body. (10:48) So you essentially have an out of box failure or failure for the sensor to connect or to to sense the glucose.
Peter SimpsonNow, our algorithms are able to detect it, so it's not a safety concern, but it is a usability concern. (11:01) It's a very it's a serious one. (11:02) You're expecting this product to work, and that's your expectation, and we need to live up to that expectation. (11:06) So when we see those failures, even if it's a small amount, we take them very seriously. (11:10) When we detected into the field, it was very early on, and we we put together what we call tiger teams.
Peter SimpsonAnd these are groups where we take them off of their projects. (11:18) They're dedicated to figuring this thing out. (11:19) They're meeting on a day, sometimes twice a day basis to to understand what's going on in the manufacturing floor. (11:25) Is there any changes that were made that could cause this to spike up? (11:29) And, over time, we did figure out what was causing it.
Peter SimpsonAnd, you know, a lot of it, similar to other issues that we've experienced in the past is when you're scaling, you get more variability in your process. (11:40) And when you identify that variability, it's pretty straightforward or or it let me not say easy, but you can you can fix it once you've identified where it's coming from. (11:48) And that's what happened in our in this case is the Tiger team was able to figure out what the root cause was and gotten it back down to a very low level. (11:56) We still have some improvement to do, and we've got technology that's gonna come out later this year that's gonna make it even even to, you know, to the best level that we've ever had in in g seven. (12:05) And so while these teams work really aggressively, you know, we have to find we have to find the issues quickly, and we have to respond to them quickly.
Peter SimpsonAnd then the most important thing is to get those improvements out into the field so that the customers are getting the best product every time with every sensor that we're making. (12:21) You know, I think what what Jake mentioned and through this process, we've learned a lot as a company in terms of being just really on top of everything that's going on in the field. (12:30) And Jake mentioned some of the improvements that we're implementing where we're doing, you know, real time monitoring on not just that one, but dozens of other attributes that we're we're monitoring in real time. (12:41) And as soon as we see something that's that's out of just slightly off, we'll we'll react. (12:45) We'll get a team that's on it and and really jump on these problems before they hit the field.
Peter SimpsonSo I think that's what we're we're continuously improving, and we're gonna be working harder and harder and and doing more of that going forward to make sure that every product is meeting the customer expectations because that that's what's required.
Scott BennerA couple of follow ups. (13:01) So what you're saying is it's only really a problem if you don't learn something from it. (13:05) And so this it showed you a way that you could actually track other things as well. (13:09) So, yes, it was a problem, but you're gonna get something out of it.
Jake LeachYeah. (13:12) Absolutely.
Scott BennerAnd I wanna tell you and, and Peter, if you have any kind of time in the future, I saw the explanation of how the goosenecking happens, I would sit down and geek out for an hour talking to you about what you figured out and what was happening. (13:25) I find it really fascinating. (13:26) And I don't know if everybody would, but, you know, in that council meeting when you guys came back in that second in that second meeting and said, oh, here's the answer to how that happened. (13:36) I thought that was fascinating. (13:37) I think the other thing that was fascinating was a description of how the interstitial fluid and the wire works.
Scott BennerIf you want, I'll do a I'll do a retrospective series with you about that. (13:46) I'd be so interested to talk about that, but I don't wanna press you. (13:49) So okay. (13:50) So you guys figured that out. (13:51) Still improvements made.
Scott BennerDoes that mean some people still might see this happen?
Jake LeachYeah. (13:57) I think, you know, one of the things I loved about this project, you know, while it was challenging and we were it was we're trying to solve this issue, it led to new innovations that are gonna drive the improvements even farther. (14:09) So we're well back to kind of historic levels for this failure mode, which is very, very low. (14:14) But there's even more technology teams working on to drive it even so even further improvement beyond where we've historically been. (14:22) So I think that's one of the things that's exciting about anytime you you learn something, new ways to prove the product and apply it.
Jake LeachAnd so, you know, it does happen very rarely still, but we we wanna try and drive as close to zero as possible.
Customer Support & Replacements
Scott BennerLet's move on to, like, support and replacement stuff. (14:37) Because I know you have a bunch and I have a couple of questions here. (14:39) I don't wanna keep you guys too long. (14:41) What's changing about how this is gonna work? (14:44) So break it up into two pieces for me.
Scott BennerIs support changing, improving, being different going forward from stuff you've learned from this council? (14:52) And what about how you're gonna replace devices when they when they fail?
Jake LeachSure. (14:56) So a couple things I'd I'd add there is that, yes, our support teams are continuing to evolve. (15:02) One of the things that we've done is the new MyDexcom account, as well as the tools that our agents have to be able to interact with our users around their experiences are continually improving. (15:14) And the goal there is to ensure that the user has the right experience from kind of an empathy perspective and also the information provided to the user by our agents, the tools that we've been launching and we're continually evolving. (15:29) But we've done some pretty major, new, launches in the last six months here.
Jake LeachShould result in more consistent experiences and more experiences meeting expectations. (15:38) There's a lot of great experiences out there, but we tend to hear more about the ones when they don't go right. (15:42) And that's one of, you know, there's always a learning there for us in terms of what we could do better. (15:48) Also, sometimes patients felt like they're being asked the same information over and over, and a big part of that is just making sure we understand what the issue is, but we shouldn't be placing that burden on the user. (15:59) Our system should capture that and then transfer it to the next individual who's working working with the user.
Jake LeachSo there is a lot of change going on there. (16:07) I mean, we're gonna continue to innovate there. (16:09) One of the three pillars I put forth when I took over as CEO, as I said, we want to set the standard for excellence in customer service for the whole category. (16:19) Right? (16:19) So we want to be the best and we want to continue improving on the best.
Jake LeachAnd I feel like that is a really important part of making sure that customer we have customers for life. (16:28) Right? (16:29) They should should trust XCOM forever. (16:30) We should always be improving and living up to that. (16:32) So that is going on.
Jake LeachThe thing about the replacements, I think the main thing here is just being much more clear in our messaging around replacements. (16:41) And, you know, unfortunately, there are instances where we have people calling us who are not users, who are trying to get replacement sensors that they can resell on the open market. (16:50) And that happens, like, you you would be surprised, Scott, but it I
Scott Bennermean, I am surprised.
Jake LeachIt it happens. (16:55) Right? (16:56) And it's one of the things that we we don't want that to happen, but we also don't want to cause an experience at the expense of a user. (17:02) Right? (17:02) So sometimes I think users feel like they're being interrogated, but a big part of that is we need to make sure you're actually a customer who needs an actual replacement.
Jake LeachAnd so that's just one example of coming up with new systems to make sure we can authenticate users with less friction so that we can get them the sensors they need. (17:20) And then the last thing I'll just mention is one of things I think that's clear is the performance of the sensors. (17:25) Some of the, what would be considered a sensor failure is really just physiology. (17:29) We're at the end, know, we're continually pushing the envelope here on CGM technology with the most accurate, longest lasting sensor. (17:35) Not all sensors last.
Jake LeachWhen they don't last, we need to make sure the user gets a sensor. (17:40) But, you know, it's often not necessarily the quality of the sensor. (17:43) So when it says sensor failed, was nothing wrong with the physical sensor. (17:46) Was just, it wasn't able to sense glucose anymore, for example. (17:49) The body started encapsulating the sensor, over those, that period of time that the patient's wearing it.
Jake LeachAnd that happens to people at different rates. (17:56) It's uncommon, but it can happen, right? (17:58) So, but our number one goal is to make sure patients always have sensors. (18:02) Customers always need their sensors. (18:03) We don't want anybody to go a day without it.
Jake LeachSo we're continuing working on systems on how to enable and and facilitate sensor replacements so that they always have that sensor. (18:13) And and we've made some improvements, and we're gonna keep making improvements to reduce friction.
Scott BennerSo not that it would be comforting to a person who it was happening to, but what's the reality versus the Internet? (18:23) Meaning, like, how many people put it on? (18:25) I'm just gonna I've said this before. (18:27) I I almost feel bad saying it out loud. (18:29) My daughter wears a g seven for ten days plus the bonus time.
Scott BennerWorks great the whole time. (18:34) I always just assume that means her physiology pairs well with the device, and I just I count it lucky. (18:40) But for someone who says, hey. (18:42) Mine shuts off on the seventh day. (18:44) I never make it past the eighth day.
Scott BennerIt gets fuzzy on the whatever they say, I don't know how to ask the question. (18:48) How many out of a 100 people is that happening to? (18:51) Do you know those numbers?
Jake LeachYeah. (18:52) Well, it's basically I mean, in in our clinical trial data, which is just a sample of patients, right? (18:57) But generally our performance in the field, because our clinical trials are large enough, we could generally see, you know, we track sense of survival. (19:05) And I'd say the fifteen day sensors are doing a little better than we did in the clinical study in terms of survival. (19:10) You know, most sensors do make it out to ten days, but not all, right?
Jake LeachOccasionally you have an experience where one doesn't. (19:16) And most of the time, again, it's based on the physiologic environment. (19:19) But our goal is kind of making sure that at least 80% of the sensors make it to the full sensor wear time. (19:28) And, you know, a lot of them, you know, it'll be day 14 or maybe day 13 where we start to detect that it's not sensing accurately. (19:35) But the vast majority today of users are getting, you know, the full full sensor wear.
Jake LeachBut, you know, it's not occasionally, sensor falls off, something happens with the adhesive, something happens with the sensor not being able to sense glucose anymore because of the body. (19:49) So I think for us, it's around whatever experience you have as a user, whether every sensor goes ten days or maybe or fifteen days or some end early, we gotta make sure that people always have that sensor they need. (20:02) And that's when you sign up for Dexcom, that's that's our goal, to make sure you get get the sensors you have and and and that you need.
Scott BennerSo is this a little bit of the idea that people don't go to the Internet to celebrate things going well? (20:13) And that when you see somebody complaining, it's mostly because they're having
Jake LeachIt's probably part of it. (20:18) Yeah. (20:19) I mean I mean, I think that those you know, we don't often I mean, myself as a consumer, I don't often celebrate all the successes I have with products. (20:27) I'm I'm usually, you know, more vocal about the ones that didn't go right. (20:29) So I think that's that can happen.
Jake LeachIt's valid. (20:32) Yeah.
Scott BennerYeah. (20:33) I'm just trying to understand it even just from a personal experience because, I'm I'm telling you, on one hand, I can count the amount of these sensors that hasn't lasted ten days. (20:40) And I'm not saying we're doing something right or better. (20:43) I just, you know, I just assume that's the situation. (20:45) But okay.
Jake LeachOne thing I have seen though is over time, people who have experience with sensors figure out what works best for them. (20:52) And so one of the things I do notice is that, like, and we see like earlier, when you're brand new to sensor therapy and technology, it, you know, you may have some learnings around how to make sure that that sensor stays adhered, stays functioning the whole time. (21:07) Right? (21:07) And so whether it's over patches or different types of skin prep, yeah, I think everyone kind of has there's different options out there, which, you know, one of the things we can do continue to do is make sure people are familiar with what the options are out there to help them continue to get the the full wear life.
Understanding Sensor Accuracy
Scott BennerCan you explain a little bit about accuracy? (21:24) So this is another thing we did in the council, and it's, I think, in the report too. (21:28) So I guess with the fifteen day or the seven day, it doesn't matter to me how you talk about it, but explain to people day one accuracy and maybe give them a little insight on how the algorithm, I'm gonna say scrubs the data it's getting. (21:43) I'm sure that's not the word you use. (21:45) But how does the algorithm make sense of what it's seeing, and why does what it's seeing why is it more sensible as time moves on after that first day?
Jake LeachPeter's a, expert at this. (21:54) I'll let, I'll let him talk about one.
Scott BennerPeter, did I ask that even reasonably clearly?
Peter SimpsonYeah. (21:59) Scott, so I'll explain a little bit of the the challenges that our sensor can experience, specifically on day one. (22:06) So accuracy in general, obviously, accuracy is super important, you know, for our customers and having consistent performance and something that we work on all the time. (22:15) Our sensors on the benchtop are really accurate. (22:18) I mean, we're we're, like, in the two to 5% MERD, super accurate and very consistently accurate.
Peter SimpsonIt's when you go into that biological environment that you you tend to see that variability and the inaccuracy start to occur. (22:30) And from a biological perspective and and, again, I wanna you mentioned it, but, you know, what we see is these these sensors that work exactly the same on the benchtop. (22:37) You put them on 10 different people, and you can get 10 different experiences. (22:41) And so part of the technology on our side is to develop, you know, that that interface, that membranes, and the coatings that work on all the different biologies that people have.
Scott BennerOkay.
Peter SimpsonAnd, again, most people don't have problems on day one, but some people do experience some inaccuracy on day one. (22:57) And what's going on there is when you insert the sensor, it's essentially creating a very small wound pocket or a wound environment. (23:04) So your body goes through this wound healing response. (23:07) And what it's doing is it's kind of sending sending some cells in there to clean up this this environment. (23:13) And when that happens, you know, these cells tend to be very metabolically active.
Peter SimpsonSo the sensor itself is working perfectly fine, but the the body is interfering with the ability of the glucose to get to the sensor.
Scott BennerOkay.
Peter SimpsonSo that's what you're actually experiencing when you have those challenges on day one oftentimes. (23:29) And, you know, after that process takes its place, the sensor really, then stabilize or that wound healing environment in the interstitial fluid is really stable for for a long period of time. (23:40) And then just to close it out at the end, why some people don't get their sensors to work last all fifteen days, it's because the body over a long term starts to encapsulate that sensor and basically start with the sensor of glucose and oxygen, the things that it needs to do. (23:54) And in in that case, we you know, what we do with the algorithm on both these cases is we are looking at that environment, looking at the sensor signal to make sure it's of high quality. (24:02) And if it detects that it's not of high quality, then it will, either blank the data temporarily or it will shut off the sensor, especially at the end the end use.
Peter SimpsonAnd and that's what it's saying. (24:13) You know, I don't trust the data. (24:14) I'm not gonna, present in a what may be inaccurate data to the customer, so the algorithm then shuts the sensor off. (24:21) So that's what we're doing, and we continue to evolve both the sensor technology to make it work better and better in a a larger population, but also advance the algorithms so that it can often then correct for those those issues and improve the performance of the system.
Looking Ahead to Dexcom G8
Scott BennerWell, I have a question I I hope is a kind of a thoughtful way of asking about g eight. (24:40) I know we're just getting this to fifteen day g seven, but if g eight was your first sensor ever, none of the other ones would have existed. (24:47) What of today's conversations and or problems that we have would never have existed if g eight was first?
Jake LeachI mean, obviously, g eight is the next big advancement for us from a glucose sensing perspective, and we're adding multi analyte to it as well. (25:03) You know, I think some of the variability that we see in performance, it certainly is going to attack that. (25:08) I mean, it has brand new technology in it that's is proprietary first of its kind where we have additional signal that we can measure from the sensor to basically self adjust. (25:19) You can think about it like calibrating. (25:21) Mhmm.
Jake LeachYou know, you can finger state calibrate when needed or when you want to for for g seven. (25:27) And one of the it's one of the unique characteristics of our of our sensors. (25:30) Think of it being able to do that on its own. (25:32) So it's it's slow it's self adapting while you're wearing the sensor. (25:36) You know, this is just an algorithm technology.
Jake LeachIt's algorithm and and trunks that measure an additional signal. (25:41) So it's very exciting. (25:43) Think that would so basically, some of the variability that folks have experienced in the past obviously wouldn't be there. (25:49) Obviously, the G8 adhesive is pretty phenomenal. (25:52) We've learned so much over time with adhesives.
Jake LeachWe're in the middle of launching the third version of the G7 adhesive. (25:58) It's already starting to roll out to the field. (26:00) People are experiencing it. (26:01) We're already seeing the impact out there. (26:03) We'll roll that across all of the portfolio.
Jake LeachAnd a GA took those learnings and took it even farther. (26:09) So quite a bit. (26:10) I mean, there's still a little variability on the first day that you're gonna see. (26:13) You know, we've always been trying to minimize that. (26:15) There'll be an improvement, but that's why we say there's always opportunity for us to continue to innovate here and, you know, provide the absolute best experience.
Scott BennerJake, you're a pro because I skipped my adhesive question because of time, and you still were able to fold it in there at the end. (26:28) I thought that was fantastic.
Jake LeachI didn't know. (26:30) Sorry. (26:30) Thank you for that. (26:31) Great.
Scott BennerYou don't have my questions in front of you. (26:33) I just I had to pick something to skip for time. (26:35) And Peter, I wasn't kidding. (26:37) If you wanna come back and really talk, like, dig deep about this stuff anytime at all, I'll I'll do it while you're having lunch if you want. (26:43) Doesn't matter to me if it doesn't eat into your day.
Scott BennerBut I really appreciate you guys doing this with me and continued success. (26:49) We love the product. (26:50) It really does change our lives every day here. (26:52) I I can't begin to say enough different ways about how it's made our lives better at my house. (26:57) So thank you very much.
Jake LeachThanks for the time, Scott, and thanks thanks for being part of the the advisory committee that's really helping us.
Scott BennerOh, no. (27:05) I appreciate it. (27:06) I I'm excited for the next one. (27:07) It's been an interesting process to actually hear other people's perspectives about what works, where they have rough spots, and the reasons behind the parts that they're worried about. (27:18) It's interesting to come into a space where you think that the thing you're saying is gonna be the thing everyone is saying.
Scott BennerAnd then when that's not the case, you go, oh, wow. (27:25) There's more to this than I even imagined. (27:26) And I'm thinking about it way too much. (27:28) Thank you again. (27:29) I really do appreciate your time.
Scott BennerI hope you guys have a a good afternoon.
Peter SimpsonThank you, Scott.
Scott BennerTake care. (27:40) Hey. (27:41) Thanks for listening all the way to the end. (27:42) I really appreciate your loyalty and listenership. (27:45) Thank you so much for listening.
Scott BennerI'll be back very soon with another episode of the juice box podcast. (28:01) If you're looking for community around type one diabetes, check out the Juice Box Podcast private Facebook group. (28:07) Juice Box Podcast, type one diabetes. (28:11) But everybody is welcome. (28:12) Type one, type two, gestational, loved ones, it doesn't matter to me.
Scott BennerIf you're impacted by diabetes and you're looking for support, comfort, or community, check out Juice Box podcast, type one diabetes on Facebook. (28:25) If you're new to type one diabetes, begin with the bold beginnings series from the podcast. (28:30) Don't take my word for it. (28:32) Listen to what reviewers have said. (28:34) Bold beginnings is the best first step.
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