#929 Stewart Pitt
Stacey has had type 1 diabetes for 44 years and she is delightful.
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or wherever they get audio.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends and welcome to episode 929 of the Juicebox Podcast.
On today's show I'll be speaking with Stacey she's 50 years old, but she was diagnosed with type one diabetes when she was just six. We talked about quite a lot in this episode, but the thing that sticks out in my head is that she cracked me up so much Stacy had me laughing the entire time. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. If you want to try ag one from athletic greens, please use my link athletic greens.com forward slash juice box. If you want to save 35% off your entire order at cozy earth.com use the offer code juice box at checkout and you can save 10% off your first month of therapy@betterhelp.com forward slash juice box. Guys, I swear to you this this episode is hilarious. Please Please join me in loving Stacey
this episode of The Juicebox Podcast is sponsored by touched by type one. Check them out at touched by type one.org or find them on Facebook and Instagram. The podcast is also sponsored today by Dexcom Dexcom, makers of the Dexcom G seven ng six continuous glucose monitoring system. Arden has been wearing the Dexcom G seven for over a month now and she loves it so much smaller and easy to use. Way to use si dexcom.com forward slash Juicebox Podcast is also sponsored by Omni pod. They of course make the Omni pod dash and the Omni pod five if you want algorithm, you want the Omni pod five let that thing make some decisions for you with the help of a Dexcom G six or if you just want to go old school and take care of it all by yourself. The Omni pod dash check them out Get Started Omni pod.com forward slash juicebox it rained here for the past three and a half days.
Stacey 2:39
Oh no way after not
Scott Benner 2:41
raining most of the summer. Like my things around my home dying and there's nothing you can do about it because you can't get enough, you know, water to it. And then the hurricane came up the East Coast and just it just it rained and rained and rained and just wouldn't stop. So I'm sure my grass is gonna grow until Christmas now.
Stacey 3:03
Probably Probably our rain Melbourne. One day it's beautiful. The next minute it's raining so we're used to it.
Scott Benner 3:12
I know I'm going to be cutting the lawn until New Year's is how it feels. Now in the mean, the way the weather has shifted since I've been alive, like on the calendar, you know what I mean? Like it just it's just it's crazy. Like I had my wife you know, right before Thanksgiving say to me hey, I think you should cut the lawn. Okay. Anyway, are you wearing headphones?
Stacey 3:39
I am Do you want me to take them off?
Scott Benner 3:41
I don't know. Are they wireless?
Stacey 3:43
No, they're not wireless. I'm old school. I didn't take them off.
Scott Benner 3:47
No, no, they seemed fine. I just wanted to check to see if you were wearing them. Is it a is it a microphone that you can adjust the distance to your mouth or Now
Stacey 3:55
am I too close?
Scott Benner 3:57
I don't know. Part of me thinks you're too far away and part of a part of me thinks it's just the the internet from seriously from Australia to New Jersey so
Stacey 4:08
calm down
Scott Benner 4:12
well I mean yours don't do yours have wires
Stacey 4:15
look well my internet or my headphones
Scott Benner 4:19
here's what I'm trying to say first of all we're recording so you know Stacy, but chances stays in the podcast. I'm saying if you're an island then once this How does the signal leave the island to get to the right like I saw. I don't know how this all works but you can't I mean are there wires that run under the ocean?
Stacey 4:45
Look there must be must
Scott Benner 4:47
see you laughing at me you don't know either. And or is it satellite? Right? I see do you
Stacey 4:57
do I sound okay, now I've got them all Her phone right up to my mouth. Yeah, no, no, it's about this. All right. Let me take it out and you tell me the difference. Okay, so let me take the headset off
now I can't hear you. Are you sure you can't hear me? Oh, now I can get. Can you? Is that better?
Scott Benner 5:25
So it's clear. Okay, cool. So as long as the are you in a room with no carpeting? Or?
Stacey 5:32
Yeah, I mean, you've got floorboards. Yeah, I can
Scott Benner 5:35
hear it. Isn't that crazy? I know when people don't have carpeting.
Stacey 5:38
Oh, come on what I do.
Scott Benner 5:42
I have a person who's recorded about 1000 of these. And I can tell him now. Now this will be fine. So if but you're on a laptop, I imagine.
Stacey 5:50
Yeah, she joined from my phone.
Scott Benner 5:54
That's interesting. I don't hate I don't hate this. As long as you're sort of seated and faced in the same direction, or about the same distance from the laptop the whole time. It's fine with me. And you just have to remember not to like turn your head away and start talking into the corner of the room because your voice will go away like that.
Stacey 6:12
Oh, okay. No, no, no, I've got the laptop leaning on my chest. I've got my backup on three pillows uncomfortable. All right, let's
Scott Benner 6:20
do this, then. I'm also surprised by how many people record this laying in bed. I don't know why. But I'm sitting up at a chair and trying to take this seriously.
Stacey 6:34
I want to say Carrie, we've gotten off to a good start the whole time
Scott Benner 6:39
turning some lights on. So I don't fall asleep. And I was listening the other day a person was like explaining something really intricate. So it was going on for a little while. But if I'm being honest, I kind of knew the explanation already. So I swung around to another computer to look something up that I thought we'd be talking about next. And when I swung my head back for the life of me, I could not remember what she was saying. And then I'm just like, I'm like, oh god, oh, God, oh, God, like she's gonna stop in a second. And I need to talk. I don't remember what she was saying. And I just I don't know what I said, I can't remember anymore. But I must have just pulled it like straight out of my ass because whatever I said she kept going. And I was like, Oh, my God, like, like, caught back up again. But that's what happened when I tried to divert my attention for three seconds. It was in Paris. I couldn't tell her though, because I thought it would just be too terrible to be like, Hey, I'm not listening.
Stacey 7:49
You're boring me.
Scott Benner 7:50
And she wasn't I swear to you, she just she was off on an explanation about something that I already understood about her. And I thought, well, this would be a great time for me to pull up this. This other thing that she's I know she's gonna talk about a second. And yeah, then I my brain is blanked out. Anyway. Introduce yourself, would you?
Stacey 8:11
Oh, sure. So I'm Stacy. I'm 50 years old. I can't believe I had to think about that. I'm from Melbourne, Australia. And I was diagnosed with type one diabetes at the age of six, in a Greek family with um, strict parents who had migrated from Greece to Melbourne, to Adelaide at the time.
Scott Benner 8:31
From Greece. Wow. Okay, so tell me again, how old were you when you're diagnosed?
Stacey 8:37
I was six years old.
Scott Benner 8:39
And you're 50 Now you're Greek, but you live
Stacey 8:44
in Melbourne, Australia.
Scott Benner 8:46
You've been there most of your life, I guess.
Stacey 8:49
Yeah, I was born in Melbourne, and then we moved to Adelaide when I was two years old. And then we move back to Melbourne when I was 10. And I've been living here ever since
Scott Benner 8:58
you have to help me a little bit because my geography is only like pop culture. Adelaide is where
Stacey 9:05
it's a state. Okay, when you're looking at the map of Australia, it's the state to your left immediately from Victoria.
Scott Benner 9:16
So I'm pulling up a map, but I suddenly have suddenly thought to myself, don't forget what you're talking about. The maps go.
Stacey 9:27
South Australia. Okay. Adelaide is out of South Australia. Adelaide. So capital city for South Australia.
Scott Benner 9:33
I have to tell you, the country's broken up. Oddly. It is. I mean, why is there a South Australia and a West Western Australia but the northern isn't called Northern Australia. It's called Northern Territory and there's no East Australia. Like, who did this bunch of criminals.
Stacey 10:00
Did it needs to be like, you know, they need to redo the whole thing again, I think
Scott Benner 10:03
there's not a ton of consistency. I've never looked at this before, like either pick funny names, or go with like direction, right? Why would you do three of the four directions? And then oh, and then there's some Is there a little like British ass kissing over here? Is that what this is? Like a little island? No, no, the naming Victoria South Wales Queensland. Is that British as kissing? Is that what that is?
Stacey 10:30
Um, more than likely probably.
Scott Benner 10:33
Look at you. You're like, I don't care. And then Tasmania, which is a place I thought was from a Bugs Bunny cartoon. I did not realize that was a real place. So
Stacey 10:42
it's a real close. It's a little island off of the strip.
Scott Benner 10:45
We're devils live, right?
Stacey 10:49
Apparently, so. Yes. Have
Scott Benner 10:50
you never been?
Stacey 10:52
No, I have been I never saw a little devil. But um, I did not enjoy Tasmania. We'll just leave it at that.
Scott Benner 11:03
Boy do something to you in Tasmania.
Stacey 11:05
No, I'm, I'm all about the sun and the beach. I don't like cold weather. It's cold there. Yep. Real city.
Scott Benner 11:14
That's interesting. By the way, if anyone wants to Google a Tasmanian devil, it's fantastic. It's a carnivorous marsupial, which, yeah, and in every photo of it, it has its mouth wide open. Like it's going to kill something. But it doesn't look very big. Yeah, correct. I don't know. How did this turn into the thing in the Bugs Bunny cartoon? It was Bugs Bunny. Right. The Tasmanian devil.
Stacey 11:41
Yes. I think it was a look. You're you're testing my memory. Now. You're making me go back. Yeah, I believe it was it was fun. That's funny.
Scott Benner 11:49
Yeah. It definitely was. Alright. Yeah. See, my memory is fine. Okay. Well, that has nothing to do with you. I, I always enjoy doing episodes with people from Australia, New Zealand, because I find that because the time difference. I'm speaking to them late at night. And they're always like, giddy or drunk. So it's perfect. Perfect. I'm
Stacey 12:15
not getting drunk. I'm just really tired. I just can't wait to go to bed. It's like midnight here?
Scott Benner 12:22
Well, I think I'm insulted. What do you mean, I you're not excited to do this?
Stacey 12:27
No, I've been waiting to do this since I think it was my fifth year. And I reached out to you. So I'm pretty excited. And I put three alarms on school, I wouldn't fall asleep.
Scott Benner 12:37
Thank you. I really do appreciate the effort. I'm being sincere. Thank you very much. So you wanted to come on to speak about something specific? Or did you just want to chat?
Stacey 12:47
I'm nothing specific, apart from diabetes like is that? Yeah, I don't even remember why I reached out to you to be honest to come on your show. I think when I first discovered you, which was only about a year ago, late last year, you just had me in hysterics, and I just learned so much from you. Considering you know, I had this disease. I had had this disease for 43 years at the time. And I was just fascinated that I've learned so much. And then every so often when I go for my walk, and I put you on and I listen to you, I just continued to learn and learn and learn. So I guess it doesn't matter how long you've had diabetes, for you'll always be learning something different or something new or something you weren't aware of. So
Scott Benner 13:36
I think that's worth digging into. Because to live that long with something, you would think that there wouldn't be anything to learn. Right? You're right, you would just think like, I'm gonna listen to this guy tell me stuff that I know art is stupid. I've been turning the television on for 50 years can't be a different way to do it. And and so tell me what, like, where were the big changes for you?
Stacey 14:05
So I've been on MDI for I was on MDI for 43 years. So up until November last year, as I said, brought up in a Greek family, it was really hard to not to accept that I had diabetes, diabetes was always in the background for me, so my dad protected me a lot and I couldn't do a lot of things he controlled everything I did. So I didn't like doctors because I had an incident with a doctor once and refuse to go back again. So I just went on my own and did my own thing and basically all I did was inject and watch what I ate and did my blood sugar that was my life and did all the tests my eyes, my feet what have you, but I never dove dive dive dive deep into it any further because it was just yet my parents Brace doesn't work. Here we go, and this is what I have to do. And then here I'm listening to you, and you're talking about being bold with insurance. And I like to do things my way I take my doctor's recommendations, or we work out things together. But I won't allow them to tell me what to do. Because I've had it for so long. And one thing that I'm struggling with being 50, you know, I've always struggled with my hormones during the time of the month, and I would skyrocket, I'd go out of control. So our numbers are different to the way your numbers are with blood sugars. So I would get up to 14 and 18, which is extremely high for me. And I could never manage it. You know, before my time of the month. I don't know what I'm allowed to say on here, because I've heard you say that.
Scott Benner 15:51
I mean, I assume it should be you're from Australia, you should probably be calling it Shark Week. Who wait Shark Week. Is that does that does that not translate? Do you not get Shark Week on Discovery Channel? Every whereas every day Shark Week in Australia
Stacey 16:12
call it Shark Week. We can call it Shark Week. Is this what you want?
Scott Benner 16:17
No, I don't want anything I mean, code read the event. There's a there's an entire like, euphemism.
Stacey 16:25
There is a cheater? Well, you know, I'm not gonna go around the bush. I'm just gonna say it. It's my period.
Scott Benner 16:34
Was that a? Was that upon when you sit around the bush or no?
Stacey 16:41
No, it wasn't actually I just realized what I said. is gonna be great.
Scott Benner 16:48
So a 14 a 14. blood sugar's about 250. So people can kind of get a feeling. Okay. Okay, so. So this is your whole life hormones and knock you out. And okay, so I want to go back for a second, though. You had a bad experience with the doctor? How old were you when that happened? And can you tell me a little bit about why it was a bad experience?
Stacey 17:13
Sure, I would have been maybe 16 at the time. And, or maybe it was, yeah, would have been that 16. Because they here in Australia, they stopped seeing children at the Royal Children's Hospital at the age of 16. They sort of move you on to another hospital, or to a private doctor. So of course, my father and I went to this particular doctor, and he asked me to lie on his on those bids, which was fine. And you know, he put the stethoscope on my chest and he was listening. And then he just decided to look in places that he shouldn't have looked in. And I just went with your dad there. My dad was sitting so he was behind the curtain. He couldn't see what was happening. What the hell? Yeah, exactly. Oh, sorry. That's terrible. Yeah, so I just yelled, my dad got up and really punched him. Because he just knew like, something's happened. And then when we got in the car, I told him what he had done. And I just refused to see another doctor.
Scott Benner 18:23
That's terrible. Did you guys do anything about it? Get him fired?
Stacey 18:28
No, no, we didn't. We didn't do anything. I mean, we just yeah, we, we just let it go. I was just like, you know, it is what it is. I just won't say doctors which could have jeopardized my health. But um, yeah, I just wouldn't see doctors. And then I was sent to him again, about 14 years later. And I didn't realize it was the same doctor. And as I've walked into him, because I've seen you before, and I've just, and the penny dropped. And I went, have you? And he goes, Yeah, we're back here. And, and then it just all came flooding back. Oh, my gosh. Yeah. And I just said to him, I don't remember uni because I don't use it. No, I don't remember you at all, which I did. Yeah. And, yeah, just get the hell out of there as quick as I could and never went back.
Scott Benner 19:15
Well, that sucks. Oh, my gosh, I have a recording coming up. I don't know when it is it's on the calendar with a with a person who is going to tell a story about how they, you know, took them forever to find a doctor that they liked and everything and they finally found one and they had good care with their diabetes. And then the guy got arrested for doing something similar. And he's, and I'm just like, what, like, is everybody crazy? I mean, is it that hard to get through life without being a piece of it can't be right. You know, but I guess it is so. I don't know. I'm always I've been alive as long as you have and it's still a story like that. I guess it shouldn't show argue and yet it is shocking. So that's all right. All right, well, so then this ask puts you on a bad path. And now you're not going to doctors for how long?
Stacey 20:10
I started going back to a doctor at about 3030. I was 3030. Once I was 16 at the time, so yeah, about 12 to 14 years later. And that was only because I, I would assume they were hypose. And the reason I say assume is because I never really experienced a Hypo. Because when I was diagnosed, we didn't even have glucometers I had to run, I had to wait in a potty and measure my blood sugar with strips. So and there were colored strips. So when the glucometers came out, of course, my my parents couldn't afford it. So we didn't buy one. And then we just didn't do anything. Because my father just let me run my life. I mean, I was 18 by the time and he just let me run my life. And I didn't want to do it. To be honest, I just didn't want to do it. So I may have lived, you know, the next 12 to 14 years blindly with my diabetes.
Scott Benner 21:13
So were you did you do the old like you shot your basil and didn't cover food or how did you handle it?
Stacey 21:21
So yeah, it goes back doesn't it? I just injected twice a day, once in the morning and once at night, and it was a mixture of proto fine, I think it was an X rapid or Novo rapid or I don't remember what the first one was. So it was a mixture of two insulins in the syringe because I was using syringes.
Scott Benner 21:49
Up can make better decisions in the moment with the most accurate CGM on the market the Dexcom G seven dexcom.com forward slash juicebox. My daughter just moved to the g7 from the G six and she already loves the new smaller size and ease of use. You can learn more and get started today@dexcom.com forward slash juicebox. Due to recent Medicare changes, millions more people are now covered for the Dexcom CGM. The G seven is the smallest most accurate CGM system covered by Medicare. And it is easy to use and to get started with no other CGM system is more affordable than the Dexcom G seven for Medicare patients. The G seven is a simple to use system it delivers real time glucose numbers to your smartphone or your smartwatch. With no finger sticks required. Effortlessly see your glucose levels and where they're headed. So you can make smarter decisions about food and activity in the moment. This amazing tool is going to help you to take better control of your diabetes dexcom.com forward slash juicebox whether you're looking for a brand new system, changing from another company, are looking to upgrade that G six dexcom.com forward slash juice box. The new G seven comes with a refreshed app that is just a delight to use. My daughter is 19 years old she's been using a Dexcom for well over a decade is at the core of how we make decisions about insulin, food activity and all of the variables that impact diabetes, check it out@dexcom.com forward slash juice box there are links in the show notes of your podcast player and links at juicebox podcast.com to Dexcom at all the sponsors when you click the links, you're supporting the podcast. I asked chat GPT to write me an ad for the on the pod five. And it tells me even puts in where I'm supposed to put music because it's interesting. Here's what I'm supposed to say. This episode is brought to you by Omni pod makers of the Omni pod five insulin pump. If you're living with diabetes, managing your insulin levels is a crucial part of your daily routine. That's why Omni pod has designed the Omni pod five, a device that's transforming the way people with diabetes live their lives. But this isn't bad. I'm sorry. Back to the deep voice. The AMI pod five is a tubeless wearable insulin pump that adapts to your lifestyle. It's discreet, waterproof, and designed for ultimate comfort. The state of the art pump automatically adjusts insulin delivery based on your glucose levels and trends. taking the guesswork out of diabetes management once is good. It should say we used with a Dexcom G six we've oh my gosh safety is always a priority but it's time to experience the freedom and flexibility that comes with the Omni pod five insulin pump. Visit omnipod.com forward slash juice box to learn more and take the first step towards a better life with diabetes that's Omni pod.com forward slash juice box make the switch domine pod Vive and discover the day prints for yourself. That's amazing. The machines are taking over people. That's pretty cool, huh? Anyway, Omni pod.com forward slash juice box, check out the only pod five, if you want that algorithm with the Dexcom G six. Or if you want the on the pod dash, and you're not looking for the algorithm, you can get started with that as well, at my link, when you use the links, you're supporting the show, those links are available at juicebox podcast.com by typing them into a browser or in the show notes of the podcast player you're listening to now. Now let me say just write me an ad for athletic greens might be unfamiliar.
Yeah, you know what threw me off. And you'll please take this as a compliment as it is, is that I'm looking at a photo of you and I don't think of you as being 50 While I'm looking at you in the photo, and so my brain didn't wrap around that you would have been using insulin like that. Yeah, but yeah, so you were just shooting 12 It's the Greek, isn't it? You look so young.
Stacey 26:10
Yeah, okay. Yeah. It's the Greek it's great hormones.
Scott Benner 26:13
By the way, do you see a photo of me right? Yeah, I can see you. Okay. I'm adopted. People told me they thought I was Greek forever. I am not. Do you see it at all? Like, why do you? Yep,
Stacey 26:27
I do see it.
Scott Benner 26:28
It's interesting. I'm not apparently the 23andme says I'm not wrong. But anyway. Okay. So by the way, I'm sorry to get off track here. But it is incredibly delightful to hear an adult say we in a potty for some reason.
Stacey 26:48
Yeah, I do. I do enjoy saying that. Because people don't understand when you say I pissed in a party and they're like you did? Well. It's like a weed. Where else do you say it or urinated? urinated isn't a nice word. So yeah, I weighed in a potty. And I did that for years. Yeah, it didn't stop when I was, you know, because I was diagnosed at six. So it didn't stop when I was seven or eight. I continued that until about, I don't know. 1112. And that's how we That's how my parents measured my blood sugar's my parents did I didn't they took full control. My father, my late father took full control. You will he people would offer me water. When would go visiting? And you'd say no, she's fine. She was the one anything. And I'd look at him going, but I'm thirsty. I put some water like it's water, for God's sake, give you some water. So he really protected me. He was over protective. But I think it's the best thing he could have done for me because I've had it for 44 years. And I'm 50 now. And I don't want to jinx myself or do anything, but I don't have any complications. Scott. And even though those 10 to 12 years, well, we're I wasn't weighing in a potty. You're measuring my blood sugar. I still monitored myself and I was careful. And I did my HB, I always get this wrong. The HB one AC, whatever. It's called My six, three months, six months blood tests with my GP. And I was always on track. I don't think I ever went over seven or eight.
Scott Benner 28:26
It's kind of aggressive. And did you get low much or no?
Stacey 28:30
Well, I started noticing lows when I was around 30. And that's when I went back to my GP who referred me to an endocrinologist. This woman's changed my life. I walked in there and she first thing I said to her is, you're not going to tell me what to do. And she looked at me, she goes, No, you steer your ship. I'm here to work with you. What you do is up to you. But I'll give you advice. And she changed my life. So she took me off the syringes. And I went down to the pins. And I was using Nova rapid and Lantus. I think it was Lantus. Yeah, probably was. Yeah. And because I was exercising, she said, I need you to do it this way. Because I need you to give yourself insulin, you have the monitor more. We're going to give you a glucometer because you train so much. So for me it was a novelty. I'd walk into work and everyone's going on what's your blood sugar today? Where are you Where and watch me and I never used to speak about my diabetes. Like it was taboo as far as I was concerned. I don't want to talk about it. No one could ask me no one could say anything to me. I just didn't want to talk about it when I was younger. So this woman changed my life and I owe everything to her to how far I've come.
Scott Benner 29:56
Isn't it interesting Stacey and you walk in there and you're just like you're not gonna You're telling me what to do. And she she knew exactly how to handle you. She's like, Oh, no, no, of course not. Meanwhile, do you think in her head she was thinking, Oh, it's one of these? Okay.
Stacey 30:10
No, I don't think she did. Because she even said to me, she goes, you're on dinosaur syringes. We have to get you off there and bring you to date. So she, I think she did play with my head in regards to, she used the right words, to make me feel like I was doing all the decisions. Does that make sense? I know,
Scott Benner 30:30
yeah, I'm married. I know, I know how to do that. She's, you know exactly what you're talking about.
Stacey 30:42
So she really changed my life. And that's where I started noticing what a Hypo was more about, I probably did have hypose, but didn't recognize them as much when I was younger. So yeah, she changed my life. And then she decided to go to New South Wales, so to Sydney, which is to the right of Victoria. And I had to see a new doctor, a new Endo. And that's when I started seeing a new endocrinologist and she was just as fabulous, if not more fabulous than the one that I'd seen. So I was very fortunate. With my endocrinologist, it's such an
Scott Benner 31:23
example to have how a decent well meaning doctor can can impact you so well. The only have to do their job and care a little bit and it makes such a big difference to you. And I'm saying that touch you inappropriately, but that as well. Yeah, well, okay, so how many years do you think you injected for? Before you got two faster acting insulin?
Stacey 31:52
I would have been around 30. So far, if I was diagnosed at 624 years,
Scott Benner 31:56
24 years, you did it that way? Then you went to a faster acting, but you were still injecting? Is that right? Yep. MDI? Yeah. And you did that for? Like, are you on a pump now? Or no?
Stacey 32:07
Yeah, I only went on to the Omnipod in November last year. So I was injecting for 43 years. 43 years.
Scott Benner 32:13
Wow. Wow. Hey, is there any chance that you got that on the pod because of the podcast?
Stacey 32:20
Well, no, not. Not recently. Basically, I'm
Scott Benner 32:25
trying to sell ads here. What are you doing? Just look, say? Just say something like, Hey, I'm a pod, I'd never would have known about the army part. If it wasn't for Scott. Good.
Stacey 32:35
To be honest, I never would have known what I know about the Omni pod. If it wasn't for Scott 100% 100%. I don't remember if I started researching the Omnipod just after I started listening to you, or if I started researching the Omnipod, just before I started listening to I don't remember. I don't know if my memory being so crappy, is because I'm 50 years old because of my diabetes. Sometimes, like
Scott Benner 33:04
question. I don't have diabetes. And sometimes I sit here thinking I know there's a word, it means this. I don't know what it is. So, and I was I was obviously I was teasing before, but about a year ago or so. insolate reached out to me and said, Hey, we're launching Omni pod in Australia. And we'd like you to talk about a little bit and I was like, okay, so I did in an ad or two. And then I just thought this would be a nice opportunity for you to say you heard one of those ads, but it's okay. Don't worry.
Stacey 33:37
You should have put me up better I would have I would have made you sound amazing.
Scott Benner 33:44
This is also nice. I mean, it's just it's um, was this a doctor that moves you towards the pump?
Stacey 33:50
No, no. So no, I started researching because I was getting frustrated with my hormones and of course my period and when I started listening to you, and you're saying Be bold with insulin as soon as I took that approach, man, it just changed my life even more than what my life had already been changed. And then I started researching maybe I did hear it from you because I started researching for a tubeless pump. I just didn't want to be on a pump with tubes
Scott Benner 34:21
can kill me Is it me or not?
Stacey 34:25
It was us thought it was you and the and then I found you and I heard you and then I've found that a bit the only people have just the
Scott Benner 34:35
best this is coercion. insolence listening right now they're like he's not getting credit for this lady. So it's fine. It's okay. But
Stacey 34:46
no, it was it was Scott. It was you. So when I researched and of course it wasn't available here in Australia. No, Scotty wasn't you now the pen is dry. Oh
Scott Benner 35:02
my god. All right, fine. Let's get past this. They see it's okay. It wasn't me. It's fine. I'm sure they'll still buy ads and hey, listen, if they stopped buying ads and the podcast collapses, it's not your fault, Stacy. Don't worry about it. Okay. It's me. I didn't come.
Stacey 35:21
I met Brett from insolate in Sydney, so I can speak to him if you like.
Scott Benner 35:26
You met a man named Brett.
Stacey 35:29
Yeah, he's from insolate. America. He's from Weed offers. Where did you meet him? In Sydney,
Scott Benner 35:37
but I noticed that they like at a Starbucks or how did you?
Stacey 35:44
I met him insolate, Australia, brought them down. And then they asked, they read one of my blogs. And I touched their hearts and everyone was crying in the office and they called me in to do a webinar. And that's where I met Brett.
Scott Benner 36:01
Oh, you met like Brett Christianson. Yeah,
Stacey 36:04
and I can't remember the other dudes name. Oops.
Scott Benner 36:07
I'm sure the other guy's thrilled right now.
Stacey 36:11
It was Lynn. Oh, no, it's just,
Scott Benner 36:13
I'm just the guy standing next to Brett. It's fine. Brett's been on the show.
Stacey 36:20
Sorry. Yes. Yeah, he's really
Scott Benner 36:22
great. Okay. Oh, so you wrote you. I didn't know you had a blog? Yeah, keep blogs. Yep. So you wrote you wrote something, I would say by the way, Stacy, you see what's going on as they were launching on the pod and in Australia, and they started looking around for people to talk to who, you know, I'm saying. So PR and marketing. I'm so jaded now. Like when I had somebody on the other day, she was really terrific. Jennifer stone. Right. So she was on Wizards of Waverly Place on on the Disney Channel. And she was absolutely terrific. And one of my favorite, like celebrity interviews, cuz she was so real and just conversational and everything. But somebody sent me a message and said, while she she mentioned the, the ink pen a couple of times. It felt like she works for them. And I was like, Yeah, I think she does. And I said, How do you think I get these people? Do you think they're just sitting around their house, like, you know what, I really want to be on a podcast and like they're fulfilling a business agreement. They've agreed to do a certain amount of media for the job they're doing, which is to represent a thing. And I'm just lucky enough that the podcast reaches enough people that the PR, people think to ask me if they'll be on. And I felt like do people not understand that, like, when you see the rock on The Tonight Show, you know, he's selling a movie, right? Like he wasn't? He wasn't like, Oh, I haven't talked to Jimmy Fallon in a while. I think I'll go over.
Stacey 37:56
Yeah, exactly. Right. Right.
Scott Benner 37:59
So okay, so they you wrote something, what, what did you write about?
Stacey 38:04
So I wrote about my experience starting the Omni pod. If anyone doesn't know what the Omni pod is, it's a tubeless pump. And it's fantastic. So I started writing about my experience the first couple of days with the Omni pod. And when I started the Omni pod, I cried for a month. I cried every day, because I didn't have to do another injection. And I cannot tell you the emotions that ran through me. And the hardest thing was that I'm going to get emotional. Now I'm going to try not to my father wasn't around my father passed away eight years ago. And they told us when I was diagnosed, by the time your daughter gets to 21, there'll be a cure will clearly have been 21 twice, and there's no cure. And to be on a pump, and not have to inject into your tummy, because that's the only place I would inject. It's not liberating. It's, I just don't feel like I'd like a diabetic anymore. And that's my hashtag. And I stand by that. Living with this pump. And of course, the senses. I actually don't actually don't feel like a diabetic. And my father wasn't here to see it or witnessed it or experienced it with me. I just broke my heart and I cried and cried for a month and I started writing my blogs and they were very emotional. Because I was just expressing my emotion at the time. And that's when that's when Jo Jo Seder from insolate Australia reached out to me and she's she was crying on the phone with me because she said your pod or your your blog. He touched my heart. She does talk to me some more. And then I just couldn't stop crying. And then they asked me to speak to government and Prime Minister and ministers. And just so we can have the pods subsidized, because to be honest, it's $400 a month here. And like it's eating into my home loan. I'm a single woman living on her own with a mortgage. And it's hard to keep it up. But I it's not something I want to give up, because it's just changed my life.
Scott Benner 40:31
And so there's an effort to get it covered by government insurance. Is that right? Correct. Yeah. Do you think it's gonna happen? Yes. That's great. Well, I mean, the perspective that you show to people listening is is really fascinating that just leaving injections was such a big deal for you. I mean, just that it meant everything to you. It's almost unexpected when I heard you say it. And, and at the same time, I thought, Oh, God, is she being paid by Omnipod? I should have asked.
Stacey 41:12
No, no.
Scott Benner 41:15
I just it was funny after everything we talked about where you're so she spoke about it so passionately, I was like, Maybe I should just ask.
Stacey 41:25
And that's the thing, Scott, I am so passionate about things that worked for me in that I love that. I'm going to tell I'm going to share it. I didn't want the Omnipod I wouldn't be sharing it. I I can go to the beach and sit on the beach on the sand, like a beached whale and just tan all day, and not have to worry about my pen and my insulin in my pen and whether it's overheating or not.
Scott Benner 41:53
But not in Tasmania because it's cold there. Correct. Spelling says I'm paying attention. Also, I fully believe that you would be honest about on the pod if you didn't like it after you were unwilling to even joke about hearing about it through the podcast. So you're like, No, I don't believe it was you. Okay? Sorry. It must be a ton of fun to date.
Stacey 42:22
I think I'm pretty good fun. Yeah, I just need as news people are scared of me. Not that they should be I've just my box bigger than my bike. Do you guys have that saying in America? I know the saying Yeah. Okay, cool. Yeah, yes. So Omnipod did change my life. And that happened November the 29th 2021. And I haven't looked back. And since that day, I've probably had three injections. Because I've had the other day, I had an issue with the Omnipod. It had a kinked cannula. And I couldn't get my blood sugar down. So just there must have a quick shot just to bring it down a quick insulin shot, if anyone's wondering, just to bring it back down. So since then, I've probably just had three insulin shots. Yeah,
Scott Benner 43:08
it's a great, by the way, a great tip. If you're wearing a pump and your bolusing and things aren't working, and you want to check to see if it's your site. Quick, easy way is to inject some insulin, if that suddenly works the way you expect it to. You might expect that there's an insulin delivery problem. So they go yeah, see that we can see something useful while we're talking. Yeah,
Stacey 43:29
of course we can. What I've noticed with Omni pod, I know exactly now when I'm ovulating. When my periods do I know it so well that I just changed my programs. And so I don't have these up and downs all the time, the highs and lows. I keep it consistent because I know my body. And it's the best thing, especially for people going into perimenopause and menopause like myself,
Scott Benner 43:58
are you getting real hot? Or what's happening to you?
Stacey 44:02
Um, I've just seen changes with my period every month. I don't get the hot flushes. I didn't get anything like that. I've just seen changes. And I'm 50 Look, it's going to start somewhere, isn't it? You would? You would. So I'm just I want to tackle it before it gets me before it gets me before it really starts happening. And that's what the Omnipod has done. For me. It's allowed me like if I wake up and have my when I wake up and have my breakfast. If I spike straight after my breakfast, I'm ovulating. So I change my program to my ovulation program. And then it comes back in line. If I start hyper when after breakfast, then I know that I need to switch it back because sometimes we forget because we're 50 we forget now
Scott Benner 44:52
do you find that during the event you need more or less insulin
Stacey 44:59
and If it depends, one month, need more and then the next month I'll need less.
Scott Benner 45:06
Has that changed since menopause or you're you think you're perimenopause? You don't think you're
Stacey 45:14
Perry? Yeah, I think comparing. Yep. So it has that
Scott Benner 45:17
changed recently, or what was it more consistent in the years prior?
Stacey 45:22
Well, I don't know. Because I was an MDI, I could never control it. I just with MDI, all I did was increase my level media, because I went on to live in media. In the mornings, I increased it by two units every morning for the date for the days that I had my period or before my period. That's all I did. And it wasn't even great. It helped. But it wasn't great.
Scott Benner 45:47
Yeah, it wasn't instantaneous enough, either. Because you have to notice it. And then I imagine you wait another day to make sure you're sure. And then yes, then you inject it, and then you don't get that benefit for hours and hours after that. And by the time you do all that you're probably halfway through your period.
Stacey 46:06
Correct? Yeah, exactly. Right. Whilst with a sensor in the Omnipod, you just see, you actually can see what's happening to your body. So you just adjust accordingly. And it's, it's the best thing I'm like, I'm like, Yay for diabetes. It's fantastic to get diabetes. You know, there's nothing wrong with you, you can get through it, because we've got this technology, and it's amazing.
Scott Benner 46:31
Are you using a libre or a Dexcom? Dexcom. Okay, and is that in Australia right now is that Dexcom? Six, six, you have the six? Is that covered by the by the Health Authority?
Stacey 46:45
It's just got covered on July the first so yes, we were paying $300 $350 for the sensor, and then another $400 for the transmitter every three months.
Scott Benner 47:02
Or Stacey, were you out of pocket almost $10,000 a year for insulin pumps, and then CGM. Wow. Yep. Yep. Why? Why does it take so long for them to cover it when they're covering other insulin pumps aren't saying
Stacey 47:18
they are. Because the Omni pod isn't part of the I might say all this wrong, because I'm not. I'm not a doctor or into medical terms. But
Scott Benner 47:30
it's just a podcast, you can be wrong if you want to go.
Stacey 47:35
It's it's not on the process price thesis list. It's not considered I don't I don't I don't understand. And therefore it's not a normal pump, like your other plants pumps. So they haven't put it on health insurance or subsidized. So that's what we're fighting for at the moment. And I and I mean, we're fighting for it. There's a few of us on Instagram, and we keep putting up posts fund the pod fund the pod, it's, you know, it's life changing, and it'll save us from complications and living a longer and healthier life. And it'll save us from going to hospital and, you know, you can monitor everything, so I don't understand why they won't subsidize it.
Scott Benner 48:24
Well, I'm gonna guess it's got something to do with money. And, and other things. Maybe there's I don't want to guess but is the other pump may be? I don't know. I don't know. I'd be guessing. But sometimes it's just political pressure. Correct. You know, and I understand that. Yeah.
Stacey 48:45
Yeah, I understand that. But $400 a month before the sensors was subsidized. Like we were paying nearly $100 A month plus your insulin plus your jelly beans or your juice box or whatever you need to treat your hypose Plus or your doctor's appointment. We were looking at $1,500 a month.
Scott Benner 49:07
Yeah. How much you know, we've been through Australia.
Stacey 49:11
Jelly Beans, a packet. A kilo. One kilo is about $12 from the pharmacy or the chemists I don't know what you guys call it over there pharmacy or chemist.
Scott Benner 49:20
Chemist better but we call it a pharmacy. Chemists makes it in my opinion. The word chemists makes it feel like they're making meth which I think is fun. Start I'm gonna start calling the pharmacist the chemist. My gosh, well, I applaud you going so hard after this. It's um, do you do it just to Instagram?
Stacey 49:45
Just to Instagram I do. I can't do my blogs on Instagram because Instagram only allows you to have certain amount of characters and my blogs go full pages. I'm on a site To on Facebook, and it's the Omni pod, Australian users. And I'm sure you can join if you want Scott. You don't have to be Australian to use it. And I write them on there. And people just use the wait for my blog so they could read it and see what's happened and how have I challenged it and what's happened because I'll say it the pod was proud. You know, Edom started beeping at me while I'm in the water at the beach and the whole beach herder and I still don't know why. And I had to race home and change it and come back to the beach to continue my tanning and then, you know, I rang insha Allah and we went through it. And it's, you know, it only cooked in the sun because there was some baking
Scott Benner 50:43
so you don't realize that that was a it was a alarm to warn you of a shark attack it was it saved. Yeah, absolutely save your life. Yeah. They can't listen on the podcast, put that in the literature because, you know, spotty coverage doesn't work all the time. But would you have a pod failure? Did you not know how to like stick a pin in the back to shut it up?
Stacey 51:13
It just was beeping and I didn't own it said call customer service. Insulin has stopped or something like that. Okay, so I clicked on it. I think it said change pod. And I said yes. And it stopped. But I was getting no insurance. So we got in the car and I had to come home and change the pod and then we went back to the beach. The first time it happened, I was quite scared. Because I didn't know what the hell was going on. Okay. The second time it happened. I'm like, Come on, man. You're killing me. All I want to do is someday you're killing me. And then the third time it happened. I'm like, It's me. It's user error. It cannot be the pod. So that's when I rang up insulin and said, What am I doing wrong? And then they said, Well, what have you been doing? I said some baking? Was the pod exposed to the sun? Absolutely. It was like my whole body is exposed to the sun. Yes. They're like, yeah, you've cooked it. It only goes up to what 38 degrees? I think it you know, it depends. We get 30s and 38 and 40 degree heat. But I was sitting in the sun with the sun beaming on it. Not 30 minutes slept for hours. I overheated. The
Scott Benner 52:31
artists laid on the beach in it. Actually, she's going to the beach on Saturday. She told me. Yeah. And I you know, she told me that she said, Oh, we're going to the beach on Saturday. Like, that's great. You'll be taking insulin and an extra pod, right? And she goes, Yes, I will. And I was like, Okay, great. Then go to the beach.
Stacey 52:49
You see, I didn't do that. Maybe you needed to tell me that because I had to come home three times and change the damn thing. I'm like, come on, Stacy. I'd like
Scott Benner 52:57
to, I'd like to share with you a famous quote from an American president. Fool me once. Shame on you. Fool me Don't get fooled again. And so that's that's George Bush, by the way. Miss Miss completely misrepresenting that it's one of my favorite things anyone's ever said. But, so you know, it's Fool me once. Shame on you. Fool me twice. Shame on me. Yeah, but have you ever heard him say it? No. Oh, it's spectacular.
Stacey 53:34
No, no, you know if I have heard him say it, I probably don't remember. me back
Scott Benner 53:39
in school. It's my, it's my favorite thing that anyone's ever gotten wrong. I don't even care, by the way about his politics or who he is. It's just, I couldn't possibly care less. It's my favorite thing. I will find the audio and put it at the end of the episode. It's so it's so great. He just like playing. Caught in the middle. He just goes fool me Don't get fooled again. It sounds like he turns into Elvis in the middle of it. It's fantastic. Anyway, my God. Okay, so. So your point is you'll write about on the pod and you'll say when you love it, and you'll say when you have a problem that you're really open and honest about it. Yeah, and yeah, I think that's important. I think, you know, years ago, I was making the point to an advertiser who was like, you know, somebody was like, negative about our thing. And I said, Yeah, well, your thing's not perfect. You know? And if you if what you want is for people to pretend it is. I think you're just I think you're just setting people up to be disappointed. Like, wouldn't it be better to know that sometimes stuff goes wrong, and here's how you deal with it instead of treating them like oh, this is going to be absolutely insanely perfect for you every minute of every day for the rest of your life. And then when something goes wrong, they think it's a giant failure. They're still just little machines. You know, like, I feel the same way when I feel the same way when people are like, I test it, and my blood sugar's 120. And my Dexcom said, I was 98. I'm like,
Stacey 55:13
yeah, there's a delay. Yes,
Scott Benner 55:15
Stacy, you still we're in a party to figure out her blood sugar. And by the way, it wasn't right or actionable. So, you know, 120 98 it's good information. It's good information. And, and they'll say, and they'll say stuff like, well, it's normally so accurate. And so you're it's normally so accurate. But this one time it wasn't. And you're right away like this piece of garbage. Like I you don't understand, like, you have no perspective for diabetes technology. This stuff is astonishing right now. And, and just getting better all the time. So are you? Are you What are you using the only pod dash?
Stacey 55:55
Guess the Omnipod. Five hasn't come here. And I kept asking Brett to accidentally leave one before he left. But he didn't want like we couldn't discuss it. We couldn't talk about it because it hasn't been released in Australia. So they were very protective of the Omnipod. Five, and that's fine, because it's not here. I have my manager who's gone to the States at the moment, and I was gonna say to him, can you just grab me an Omnipod? Five and bring it back for me, but I didn't realize that you need letters and what have you. So I just a board that mission?
Scott Benner 56:33
Board board? Yeah, you know, of all the companies, they they don't talk about stuff before it's cleared. Because it can cause real, like regulatory problems while they're trying to get stuff through the FDA. Yeah, I remember God who came on somebody from something one time and just said something offhanded about something that hadn't been cleared yet. And I got like a panic email about six hours later. And it was just like three words. And he's like, You need to take those three words out, or we're gonna we're gonna get killed by the FDA. And I was like, whatever, it's fine with me. Like, I don't want I'm not trying to get you into any would entertain anything wrong. Like you don't even you just kind of like, kind of wondered out loud about something. And he's like, we can't say that right now. And I was like, Okay, no problem. So but yeah, they're all very they're paranoid. They Oh, yeah, they really are.
Stacey 57:27
So if the TGA is listening, you need to get your act together. And if the government's listening, you need to get your act together.
Scott Benner 57:33
You think the government will listen to this? Hey, if someone from the Australian Government is listening, I'd like to email. I'd like to know that I have that kind of power. You know what I mean? Because I'm going to start asking for other things. For instance, why can't you make the sharks remote control? Like what if you put like a little like headset on them, like in the cartoons, and you could keep them away from where you guys are surfing? How many people are killed by sharks in Australia every year? By the way?
Stacey 57:59
I don't know those statistics. Those statistics don't bother me because it hasn't killed me. So I don't really care. Why are you swimming with the sharks in the first place?
Scott Benner 58:08
I don't understand. And I don't agree. They shouldn't be. How many shark attacks have been reported in Australia in 2022. There have been 11 Shark Attack bites in Australia. But by the way, here's an interesting statement, zero provoked and one fatal. So one person has been killed by a shark in Australia this year. But what the hell does they're not provoked mean? How do I how do you know that the shark didn't feel provoked. Did you ask?
Stacey 58:37
Exactly right. They're in their territory at the end of the day.
Scott Benner 58:41
Wow, this is a thing they track. How do you provoke, unprovoked, provoked while they train, by the way, while they track shark attacks forever, recorded shark incidences since 1791.
Stacey 58:59
Oh, my God, who's keeping
Scott Benner 59:01
track of this?
Stacey 59:04
Insulin wasn't even released in 1791.
Scott Benner 59:07
Exactly right. And we were still tracking shark attacks. Most of them are minor lacerations, by the way. All right. Okay, except for the ones that say horrible things, which I'm not gonna do let's just stick with the most of them are just minor lacerations. That's fine. I didn't know that. People were tracking something like that. I've been scrolling the whole time we're talking I'm only to 1930
Stacey 59:33
they go. I say so. We don't even have a cure for diabetes. Yet. They're tracking sharps shark attacks,
Scott Benner 59:42
by the way is que LD Queensland. Yes, it is. What do you mean? I'm going to be like an official Australian by the time you and I are done talking. Also, my my my my sense of humor works in Australia, doesn't it?
Stacey 59:57
It does what you've got me in hysterics on my mom. Mr. walks every day and when I decided to listen to you, I just, I died from laughter
Scott Benner 1:00:05
I'm gonna move there when I retire. Can you get rid of all the spiders before I get there, please? Because if you could do that,
Stacey 1:00:12
just just move to I don't even know where I could send you so you don't get a tape boy, what a great white
Scott Benner 1:00:19
one. I'm not going in the ocean. But I do panic because if something goes wrong, how do you get off the island? You don't I mean? It's just not. I want to be able to run on land. Seriously, I want to be able to bolt in a direction if stuff gets upside down. You have you ever heard the one episode I did with someone? Where I was, you know, joking, joking about spiders. And then they told a story about a spider being in their toilet?
Stacey 1:00:44
No, I didn't hear I haven't heard. Do you know you've got over 700 episodes like, I only started listening to you last year. I haven't gotten through even half of them.
Scott Benner 1:00:53
Have you considered quitting your job or so that you could listen more?
Stacey 1:00:58
Now? Because then I couldn't afford my Omnipod on the pot again.
Scott Benner 1:01:03
Could you just real quick say Omni pod.com forward slash juice box in that delightful accent of yours.
Stacey 1:01:09
omnipod.com forward slash juicebox. Thank you in that delightful voice of mine. Is that right?
Scott Benner 1:01:18
I like the way you say I like the way you say it. You say insulin, which is cool. And when you tried to say HB a one say it was delightful.
Stacey 1:01:28
I don't even know what it is HB a one C HB one AC Hb C one a I don't even know what it is.
Scott Benner 1:01:36
I have to say I've got I think I've gone over this with an Australian in the past. But my favorite part of it is that you take the H and you turn it into a word that sounds like haitch. So it's almost like, hey, YH a Yech, maybe. And then it says like, hey, H, HB, HB. So it's H A, I think it's ha why. Maybe see hy CH and then B, B, E, and then and then you put the, you put the one in front of the A. So you go HB one a one C, which is backwards. It's a once it's absolutely delightful. I'm I swear to you, I don't know why you're single. But if Kelly dies, I'm coming and finding you for sure. And by the way, she's on a flight right now overseas, so All right.
Stacey 1:02:31
Well, look, the man you know about diabetes. You know, you're very welcome.
Scott Benner 1:02:38
I would totally be a catch for a 50 year old type one wasn't?
Stacey 1:02:43
Absolutely.
Scott Benner 1:02:45
I never thought of it that way. I'm gonna have no trouble dating if this plane crashes.
Stacey 1:02:52
Well, Kelly,
Scott Benner 1:02:54
Munich right now texting me from the airport. So she had to go to she had to go to Paris for work. And she's she's on our way back. Her life is horrible. Very tough. As you can tell. Yeah.
Stacey 1:03:06
It sounds a constant struggle.
Scott Benner 1:03:12
But okay, so let me make sure. Is there anything we haven't talked about that I should have? The one thing you thought you put in your notes about growing up in a Greek family, like you said it like that means something. So let me first ask you the obvious question. Your favorite actor is John Stamos. Right.
Stacey 1:03:35
George Clooney Clooney.
Scott Benner 1:03:36
Okay. All right. I just thought
Stacey 1:03:39
you know, John Stamos is pretty hot. And he doesn't even look like he's nearly 60. But George Clooney is just Ah, he's holding up. Ah, he's amazing. Yeah. Like, what's planning is my favorite actor. Did I write John Stamos?
Scott Benner 1:03:54
No, I just assumed because of
Stacey 1:03:56
the Greek well, because he's great.
Scott Benner 1:04:00
And you have the mind big. You have My Big Fat Greek Wedding on like VHS and DVD, right?
Stacey 1:04:05
Correct. Yeah, absolutely. I do.
Scott Benner 1:04:10
Wait a minute. Do you really?
Stacey 1:04:12
I do. I've got it on DVD. I don't know about VHS. But I do have it on DVD. Yes, I do. But my
Scott Benner 1:04:19
powers of generalization are amazing.
Stacey 1:04:23
You stereotype me too.
Scott Benner 1:04:25
It's so easy. I don't I always say to people, like you know, stereotypes are wrong. And I was like, Oh, okay. They're also incredibly accurate. So how do you think I jumped to so many conclusions while I'm making the podcast and I'm always right. Always right. Even even with the spider and I'm like, oh, spiders are terrible, right? She's like, Well, yeah, there was one of my toilet. I was like, yeah, see? I'm right about that. Anyway, okay, so Well, no, now that I've heard you say that I don't think I'm a good replacement then. As a mate because if you're looking at George Clooney, I don't think I'm on the same. Not exactly on the same scale as him. You don't I mean
Stacey 1:05:09
I think all the women look at George Clooney like that. I don't think it's just me.
Scott Benner 1:05:13
I believe I look at George Clooney like that. So handsome man. Like you're me. I'd hit two by the way.
Stacey 1:05:22
Oh, yeah. Brad Pitt's. Alright. Yeah,
Scott Benner 1:05:24
we don't love Brad Pitt because he's his features aren't dark enough for you? Hmm.
Stacey 1:05:28
Um, I don't know. I don't know what it is about threat. Brad Pitt. He's no he he's just got on the i But here's something about Clooney. I know. Do you really devastated when he married that woman that he married?
Scott Benner 1:05:43
That woman? Woman that pulled them out of the dating pool. I was so close.
Stacey 1:05:50
Oh, it was like lice. You've got no idea. Scott. Isn't she no idea. Isn't she like
Scott Benner 1:05:54
a genius and an attorney and like nine other things?
Stacey 1:05:59
And like 10 or 20 years younger than me? Yes. She is. My age.
Scott Benner 1:06:03
Is she really younger? Yeah, she's
Stacey 1:06:06
younger than him.
Scott Benner 1:06:07
Oh, I guess if I was George Clooney, I'd get a younger
Stacey 1:06:11
show.
Scott Benner 1:06:14
Hey, have you ever seen Brad Pitt's brother in anything?
Stacey 1:06:19
Nine. Has he got a brother? Yes.
Scott Benner 1:06:21
Do you don't know. Stupid? No, no. No, stupid. No, no.
I believe I think this episode's gonna be called stupid.
Stacey 1:06:37
I dare you to do that. That'd be so cool.
Scott Benner 1:06:44
Meanwhile, the people from AMI Potter like call it on the pods available in Australia. But yeah, yeah, call
Stacey 1:06:50
it that Oh, call it fun the pod stupid. Stupid though. We can hashtag the Prime Minister's?
Scott Benner 1:07:03
Well you can do that anyway, you don't think they'd be like, Why am I listening to something called stew kit? Also, after all this, they they're probably not even inclined to help you. But just like this why? Exactly right. Now, I mean, seriously, it's it's great to bring awareness to it. Because I mean, it's just, it's obvious, right? Like, people need choices. And they need options. And they need to feel like I mean, it took it. You didn't even know you were hopeless. I think if I'm if I'm understanding your story correctly, like you didn't real I don't imagine you knew when you got an insulin pump, that you would feel the relief that you felt.
Stacey 1:07:45
No, no, absolutely not. I I don't even know. I didn't even think about how I would feel. All I thought about was I can control my hormones in regards to my periods. My ovulation, perimenopause, menopause, that's all I thought about. And then when my diabetes educator said, put it on your arm, and this is it. I went back to work. And I was in a daze. I was walking around the office and people were saying to me, are you okay? And I'd look at them. I said, Yeah, but I've got this thing on my arm. And I'm just, I'm just trying to come to terms with it. I don't really know what's going on.
Scott Benner 1:08:26
Yeah, so it's weird enough to put something I hear people say all the time, like, especially about their children. Like a lot of people with newly diagnosed kids. Like I don't want to stick something on my kid. And I'm like, you listen, the pros are gonna far outweigh the cons. Just go for it, you know. So after you get past that feeling, like you, you describe, like actual elation, about not having to and I assume there was there was that and then the sadness of not like, I assume you wanted your father to be able to experience that too. So he wouldn't have to feel as badly for you or worry about much. Yeah, yeah,
Stacey 1:09:02
yeah. Because I told my mom, and my mom's nine, turning nine to one. So she was 90 at the time. And I don't think she really comprehended what I've done or what this means. And all she said to me, in her Greek accent once, good luck. And I just looked at her and I'm like, I don't think she understands what this actually means. Yeah, for me, and even though I tried to explain to her don't have to do an injection again, in Greek or send it to her. I still don't think she totally grasp what it actually means was with my dad, because my dad did everything. He injected me. He used to chase me around the house and I used to be crying my eyes out. So he wouldn't give me an insulin shot. I just would scream and yell and you know, he was 41 when I was diagnosed, and he aged within six months of me being diagnosed And he experienced it all he, he did it all. So the fact that he wasn't here, it broke me. It actually broke me because it would have been something I wanted to share with him and set him dead. Look, it's not a cure, but it's like a cure. I feel cured. And he would get it. Most mum didn't understand it.
Scott Benner 1:10:22
Do you think if she was younger, she would have understood or even Yes, yeah. But my mom ad and there are times where she responds to things. And I think I don't even think she means that. Like, I don't even know that she has an opinion. Sometimes I think she's just working off the last thing that she remembers. And yes, you know, it's just it's tough getting older, but I understand what you mean. Like you didn't you lost out on telling your father and then telling telling your mom was anticlimactic and not very fulfilling? Right? Well, you told me and I understand what you're saying. And I'm thrilled for you.
Stacey 1:10:57
All Thank you.
Scott Benner 1:10:59
Not the same, but you know,
Stacey 1:11:02
no, but and that's the thing. And, you know, like I've had people when I brought it in my pods, and I've had friends that follow me, you know, there were friends that have asked me about it. And they get just as excited because they used to see me in a restaurant, pull up my top, calculate my car, because I'm by carbs, I follow my macros strictly not for my diabetes, follow up for weight loss. And because I lift weights, but they used to see me lift up my shirt or my dress and just inject and, you know, one of my closest girlfriends, she she's just as excited as me, because she just looks at the PDM she says that it every time is 30. And I'm like, Yeah, that's it. That's all I have to do now. And it's just the best best feeling. And then, you know, I've got a sister and a brother and a brother in law and a sister in law, my sister in law is a type one diabetic as well. And she's obviously married to my brother, and their son is a type one diabetic also now, and I was telling them and they didn't. None of them got excited. And that's because it was taboo. We made it taboo to talk about it because I didn't want to talk about it slot. I told no one I traveled overseas and I didn't tell the people I was traveling with that I was a diabetic.
Scott Benner 1:12:19
You know, and now you're willing to talk about it. And well, that's good, because they'll figure it out from watching you at some point too. Yeah. All right. Yeah, they absolutely will. And that and you'll end up helping them as well. Also the way you say Tebow was amazing.
Stacey 1:12:35
To me.
Scott Benner 1:12:39
Sounds like a city and Star Wars. Lovely. Taboo. I mean, it's fantastic. I listen, I can't say water. So you know, whatever. But now that's a lovely story. It really is. We mixed it in with a lot of insanity. But I think it's, it's a really lovely, lovely story. And, yeah, I think it's important. So you're gonna keep going. I imagine if you can get on the pod five one day you will?
Stacey 1:13:14
Oh, absolutely. I'm first in line. I've told insolate in Sydney, as soon as it comes out, you're going to ring me you're going to tell me I'm going to be there. We're going to do this. I don't want to wait any longer than what I had to wait for the Omnipod because we had to book in, go through the diabetes educator. And you know, it went on a little bit too long, but that's okay. I'm there I'm first I'll be you'll see me on the news in America going there's a crazy girl running around Australia. She got the Omnipod five that'd be me.
Scott Benner 1:13:43
Listen, I don't know if it's inappropriate to say but the one thing I don't like about this Omnipod story is that now they're not fit women pulling up their dresses in restaurants anymore. I mean, I think that's a downside if I'm being honest.
Stacey 1:13:59
Probably is but hey,
Scott Benner 1:14:00
how was How was lunch? Jim? I was good. I had a burger and some girl put her dress up it was fantastic. I don't know what the hell she was doing but you know me it made the wait for the French fries easier
you don't have french fries never. What was even had French fries in Australia. Of course you do. Right? Yeah, we
Stacey 1:14:25
have french fries in Australia. But I was so discreet Scott people didn't even know that I did it half the times.
Scott Benner 1:14:32
No, I know. I know you get really good at it. I actually when you notice people doing it in public. I sometimes think I only notice it because I know what they're doing. And right and they're there so like, alright, I'll just like Ninja like about it that I don't think anyone else sees it but but somebody else who knows about it, you know? So
Stacey 1:14:56
yeah, I remember the first time I did it at a restaurant with one of my My closest girlfriends, she had never seen me do it before. And she went into complete meltdown. She calls the scene at the table. Really? Yep. She calls the scene. Oh my god. What are you doing? Why are you doing that here? Can't you go to the toilet? Why does it have to be here? Are you embarrassed?
Scott Benner 1:15:19
Oh, she's Uh oh. Oh, yeah, I almost used a bad word.
Stacey 1:15:25
You should have called Don't worry about that. I don't know how I have managed to speak to you without dropping a few bombs there. But yeah. You go to the toilet? What do I have to go to the toilet? You go to the toilet. And
Scott Benner 1:15:40
that's, I never understand that. That reaction, like if someone like it's the tiniest bit of common sense to look at a person and go, Wow, that's a lot for a person to have to do. I'll be flexible here. You know, even if it bothers me, Hey, real quick, the bad word that you were thinking of for her say it and I'll bleep it out. And then we'll see if it's the word I was thinking. Go ahead. Oh, I was thinking, no, no, I can't say my word.
Stacey 1:16:08
You should use Alright, tell me what it started then I'll say it just blanked me out.
Scott Benner 1:16:13
I was thinking, Oh, my God. I was thinking, actually.
Stacey 1:16:19
No, that's one word. I don't use God. Unless I'm in the car by myself. And you drive like a maniac. You're gonna cop that word, but in front of people. I do not say that word. I try not to
Scott Benner 1:16:30
know. I don't think I obviously wouldn't either. I could barely get it out. But I'm just thinking like, doesn't it? Does the British connotation of that word. Is that the same? As in Australia, like the vibe of what that word means? Yes, yes. So then it would fit in that spot. Right. But it wouldn't have the American feeling of it?
Stacey 1:16:50
No, because what's the American feeling of it? Do you guys use it differently to us?
Scott Benner 1:16:55
I think here, it's just a it's just a vicious word about women. Whereas I think I think in like in England, Australia, it's more about like the way you would like if you saw somebody just being a, like, an A jerk you like you'd almost call them like a dick here, I think yes. Right. Correct. Yeah. But yeah, I don't know. I love when a person with an accent uses that word correctly. I find it to be delightful.
Stacey 1:17:26
So we use it pretty much together with the other word that I said.
Scott Benner 1:17:31
Oh, which one goes? So hold on. We'll just bleep this out. Is it? It's not like you don't just put them together, right?
Stacey 1:17:39
Yeah, we do. We absolutely do. What do you think? Oh, like
Scott Benner 1:17:42
that. That's beautiful. That's fine. bleep that
Stacey 1:17:45
out. Leave it in let people hear I can't
Scott Benner 1:17:47
I can't leave that enter. I lose my clean reading and I are an apple will take me out of certain countries. Oh, you better bleep it out. No, I believe it out. But I love it. Although, although I got a very passionate note from a woman here, we'll end on this. Let me take a drink Hold on. I got a very I use the word. So I left the word fun in an episode by mistake during during the editing process, and then the very next day, I did it again. So for two I don't know what was wrong with me that week when I was editing, but I missed the word twice in in concurrent episodes, I'm making so much editing for myself right now. And and so I immediately realized that and I took them out. And I went to the Facebook group just to share with people Hey, like, you know, I missed a couple I'm sorry. And I titled the Facebook post, I gave to by mistake. And then I just explained, you know, in this episode in that episode, but it's been fixed. And if you're scared, you're gonna hear it, delete the episode and redownload it you should get a clean copy. But some people's players don't replace copies when I put them up. There's nothing I can do about that, blah, blah. And I just explained it out. Like I really wanted people to know if you don't want to hear it. Like, here's a way you could possibly get ahead of not hearing it. And I got a very passionate note from a woman who told me how much the podcast has helped her. How amazing it's been for her health, but that she was not going to listen anymore. And I was like, wait, what? Because at first I thought, well, that's strange. You know, do you mean like, like, if it's helping you that much like you're gonna give away your good health or your happiness or whatever for for this. But yeah, like it meant that much to her. So I responded back to when I said, Listen, that was an honest mistake. I didn't just leave it in there on purpose. Like I genuinely made a mistake and I didn't take it out. And then she responded back and she said, Well, I'll think about it. And I was like, Okay, well, she's like mistakes do happen. I was like we are being very serious right now and about something that she obviously felt very strongly about that. It's was interesting to me. Because I don't think twice about it. Like I wouldn't if I if this wasn't a clean rated show, I would be cursing a lot more. You know?
Stacey 1:20:09
100% I get you it's it's part of our vocabulary vocabulary, but at the end of the day, she's got what diabetes and you can't say the words. What come on all the time because it frustrates us.
Scott Benner 1:20:22
Do you think she does? Yeah, obviously my I'm going to spend an extra half an hour cleaning up this episode, but that's not the point. And we're in this far now. You know, In for a penny in for a pound. Which I'm sorry. I'm sure George Bush would have said in for a nickel buy me $1. So But alright, so do you want to stay? So we're done. But do you want to stay with me for a second while I find the George Bush thing? Yeah, no worries. Okay. Because you gotta go to bed. Oh, don't
Stacey 1:20:54
worry about it. I normally get up at this time to change my pod.
Scott Benner 1:20:58
Why is that happening? Because
Stacey 1:21:01
because we pay $400 SCOTT I use it up until the ADL was a finish.
Scott Benner 1:21:05
Oh, you stretch it out as far as you can. Yeah,
Stacey 1:21:09
absolutely. And if I have to get up at one o'clock two o'clock in the morning, then I'm gonna do that
Scott Benner 1:21:16
Alright, hold on a second. Let me see if I can pick this up on the microphone.
Speaker 3 1:21:19
There's an old saying in Tennessee I noticed the Texas Property boom it was shamoon.
Stacey 1:21:40
He was a bit muffled but I heard that last week. You for me for me. What did he say?
Scott Benner 1:21:46
He starts out he goes there's an old saying in Tennessee. I know it's in Texas, probably in Tennessee that says Fool me once. Shame on shame on you. Fool me. You can't get fooled again. By the way, is that not like a Led Zeppelin? Or, or Pink Floyd? Lyric?
Stacey 1:22:10
I don't know because I don't listen to them. You can't get fooled
Scott Benner 1:22:13
to get what is that? How are you not going to be helpful for me? Now if I need to know this?
Stacey 1:22:18
I don't I don't listen to Led Zeppelin or Pink Floyd.
Scott Benner 1:22:23
Well, I'm a girl. You're a girl. It's the who by the way. I've added myself as not knowing my 67 days rock won't get Won't Get Fooled Again is is that who song? So in my heart, I believe that he started into this. forgot he was in Texas, first of all, said Tennessee. Right. And then it's fantastic. And then he starts into the saying gets lost and finishes with who? Lyric? It's brilliant. Absolutely. Absolutely brilliant. It's just one of the best gaffes I've heard in my entire life.
Stacey 1:23:01
Anyway, know that when we get off, I'm gonna go and google it suck and listen to it properly. Yeah,
Scott Benner 1:23:06
well, and I will. I'll find them mp3 And I'll drop it in here. So it's, that's got to be public domain. I'm sure I can put that in here. So all right. Well, Stacy, you were a lovely, thank you so much. I appreciate you doing this very much.
Stacey 1:23:18
Oh, no, thank you. And like I said, I don't even remember why I contacted you. But I'm really glad we had the conversation was just, yeah, you've made me laugh, like you're always doing it's, it's been great. It's really good. And, you know, you just have to know what, what a difference you make to people with type one diabetes, then for someone who's lived with for 43 years, and like I said, you know, you think you know it or and then I'm listening to you. And I've learned so much. You know, I take my hat off to you. It's just amazing. And I can't thank you enough.
Scott Benner 1:23:50
That's my pleasure. And it's very nice of you to say that. Thank you. I also think that you added something today to the podcast. That story about your father, I think is going to resonate with a lot of people. And so I was very nicely to share it. And I know it must not be easy to talk about.
Stacey 1:24:07
Yeah, no, look, I love talking about my dad. Sometimes I get really emotional. Sometimes I'm okay, like today I held it together. But he was yeah, obviously. He's a little girl. I was the youngest. I am the youngest. So I was definitely daddy's little girl and you know, a Greek man whose daughter is diagnosed with a disease that would never be cured. You know, that hit him hard. And he took me everywhere to get me cured because he couldn't understand that. So, you know, my dad means a lot to me and I miss him like hell every day. But it's these little things that I want to share with him and our car. And I have to talk to myself in my house going Dad, can you hear me Shut up. We look among the Omnipod and it's just not the same. To actually hear him say well done. You know, I'm so proud of you just to give me a cuddle
Scott Benner 1:24:59
a lot You've never heard him answer you have you have never well, you've never heard him answer you have you?
Stacey 1:25:06
Um, I haven't heard him answer me. But I have felt him. I know you're being facetious. With me right now he's
Unknown Speaker 1:25:16
got some serious I had to stop.
Stacey 1:25:20
No, I haven't heard him answer me. But I have failed to hear. And I know that he's here with me.
Scott Benner 1:25:25
That's wonderful. Good. I'm glad he sounds like he was a terrific father. And I understand why you missed him so much.
Stacey 1:25:31
Yeah, he was like you the way you look after Aidan, that was my dad, no, maybe a little bit strict on my dad, because he was great. But the way you look after Aiden, I just sit and I hear you when you talk about her, and you tell her what she needs to do, and she ignores you. And you know, you look at her at the sensor and where she's at. And you tell her how much to give herself and all this stuff. It's like, there's so my dad used to do with me, just of course, with syringes and vial, insulin, you know, glass vials of insulin. And yeah, it's, you've, you've done a terrific job to see, you need to be proud. And you've helped a billion of us if not more, you know, that, you know, type one diabetes is? It's, I don't want to say it's a crappy disease. It is a crappy disease if you let it be a crappy disease. But it's the people that look after you who are think with the most of you, it's harder for them than it is for the individual.
Scott Benner 1:26:31
You know? Yeah, I think that there's a perspective both ways that's valuable for people to understand. I think that parents can not sometimes completely appreciate what it's like for kids. And I think the kids don't appreciate what it was like for the parents. And I'm always happy when I talked to adults who were kids with type one. And they have that realization about what it must have been like for their parents. I think it's I think it's a nice closing of a circle.
Stacey 1:27:01
Yeah, absolutely. Do you know, I blamed my dad, one day, we'll fighting and I turned, and I knew what I was saying wasn't the right thing. But I actually said to him, I said, it's because of you have got diabetes. And that was the worst thing I could have said to him. And his heart broke in front of minnows, a little teenagers, a little beach. And I just walked away. I had no care in the world that I had just heard my father. And then like, now, as I got older, and once I lost him, I've apologized profusely to him going, I was a beach. I'm sorry, I was a real bitch. What can I say? I shouldn't have said that to you. But that's what I said to him. Because I was hurting.
Scott Benner 1:27:36
I think, in every scenario without with or without diabetes, at some point, a child is gonna say something hurtful to their parent and the parents are, you're not ready for it the first time it happens. But if you're, if you're thoughtful about it, and sounds like your dad was like, I'm sure he realized you didn't mean that. So I wouldn't beat yourself up about that at my kids have said stuff to me. And I'm like, Oh, well, it's a good thing. I gave up my whole life to make you. Great. It's really feels all worth it right now. Thanks a lot. And then I look back, and I'm like, you know, my mom tried to plan a surprise birthday for me. I don't remember how old I was. And I somebody, like ruined the surprise. And I was uncomfortable with the idea of people gathering to like, celebrate me. And instead of instead of telling my mom that I yelled at her, and and I made her cancel the party, and I felt bad about that my entire life. But you know, I didn't mean anything by it. It was a it was a reflection about how I felt about myself not about what she was doing. Yeah, of course. And you guys listen to the podcast, even though I tried to joke my way through it, I'm still incredibly uncomfortable. With it like that. You just said a lot of lovely things that I'm pretty sure if I was completely healthy, I would accept in a better way. And I just did. Because, you know, intellectually, I think I'm more than aware of what the podcast does for people. And I know, I know, when you reach numbers, it, it feels. I mean, listen, it's if you help one person, that's an amazing feat. And I have, you know, I'm not saying you have to help 10 people for it to be amazing. But there is the you know, there's something that happens when you reach millions and millions of downloads that you recognize that if this is your story, or if someone's talking about how the podcast helped them that there are other people like that. And so I do my best to absorb them. You know, there was a there's a great review that came a couple days ago from Great Britain. And the person just said that, that I'm making the diabetes community stronger, and improving and improving people's lives and I try really hard to accept that like I, I've, I put it on my desktop so that I could try to not be uncomfortable with it. Yep, you know,
Stacey 1:30:01
and you should accept it. And it's like when people give you a compliment you people don't know how to take it. And, you know, you respond like, Yeah, whatever or okay, and you never say thanks for the compliment. It's the same. It's because we're just doing what makes what feels good for us. And we're hoping other people, but we don't expect people to thank us for doing something that we enjoy doing, because you're doing this because you enjoy it and for your daughter for Aiden, so you don't expect to get recognition. So when you do it does feel like weird. It's like, oh, okay, cool. No worries. Thank you. Yep. All right, and you make a joke out of and that's fine. But, you know, I'll keep telling you, I'm gonna keep writing now messages on your wall, and I'm gonna send you messages on Instagram and get you the best. You're the best.
Scott Benner 1:30:47
Thank you. Very nice. Thank you. Hey, listen, I feel horrible saying this at the end that I've contemplated not saying it but it's art and not Aidan.
Stacey 1:30:55
Oh, gosh, why did we go back and rerecord these I have to change your name to
I you serious, you let me go a whole hour and you didn't tell me. Jesus
Scott Benner 1:31:14
was having too much fun. And by the way, I think she was like that you don't know her name. Like that. It's not stuck. Like she. Like every time she comes on the podcast, I get a text that says your people are following me on Instagram. Can you tell them to stop? And I was like, I mean, not individually. I don't know how to do that. I was like, Don't I'm like your private. Like, just don't follow them back. And she's like, I don't know. Like okay, so but I love her. She calls them my people. She's like your, your people. Oh, by the way. If you haven't seen it yet, someone turned me into a Christmas ornament. Wait on Etsy, Etsy, Etsy. How do I say Etsy? Etsy? Etsy? Yeah, they're like, like wooden clothes pins in felt clothing with a Juicebox Podcast shirt on holding a Dexcom receiver. And it's, it's, I gotta tell you, it's it's amazing. And it's freaky at the same time. Like, like, I got a text from Isabel and she goes, I work for for a Christmas ornament. I said, you don't work for me. I don't pay you. She goes, You know what I mean? And, but it's, it's, it's amazing. Like, you have to find that it's on my Instagram right now. So you can go look when you're done. But he has someone turned me into a Christmas ornament. And I was touched by it. Like I really was. I thought, when I first saw it, I thought I must really reach farther than I think because this is this isn't this is an interesting thing for someone to do. And then I showed my son he goes, Yo man, one of these people is gonna murder you.
Stacey 1:33:05
That is so true.
Scott Benner 1:33:08
It was like what he goes that some serial killer right there. He's like, Look at this. And it was just one of them. But then I I let her like I let her put it up on the Facebook group. And I guess people ordered them. So then she sent me a picture of like, eight of them together. I was like, oh my god, people are buying these. And then I got then Stacey, I had this thought I was like, she better send me one. And I don't want to have to ask for it. You know what I mean, Stacy, like somebody better just reach out to me and say, How do I get you one of these? Because I'm not taking any cut of the sale? And I think she's charging like over $20 for them.
Stacey 1:33:41
She better get on flow, or get on? Maybe she
Scott Benner 1:33:48
No, I'm not gonna tell you. But I would love I would like out. Do you know if I hung this on my Christmas tree? It's possible my family would burn the tree.
Stacey 1:34:01
Then the trade down will disown you.
Scott Benner 1:34:03
A woman asked me yesterday. She's like, how do I use these if I'm Jewish? And I said I would use a pipe cleaner and have it hanging off the menorah candle. I think it would be amazing. Anyway,
Stacey 1:34:14
all right, please like you wait and see what I'm gonna do on the face on your Facebook page.
Scott Benner 1:34:20
Yeah, I mean, it has not been offered yet. Maybe she's just doesn't want to impose. But I mean, at this point, I'd like one. And I like I like that. She made me thin too. I think it's fantastic.
Stacey 1:34:31
Can you Did you hear that? That was my Dexcom going off.
Scott Benner 1:34:34
I heard that. It's trying to tell you there's a shark coming?
Stacey 1:34:36
No, see, he always goes up at this time.
Scott Benner 1:34:41
Your blood sugar goes up at this time of night always.
Stacey 1:34:43
Yeah, we've just hit 10.3 Why don't you
Scott Benner 1:34:47
set a Basal rate an hour before when it usually goes up and try to stop it.
Stacey 1:34:52
Because I've been monitoring it and I've just increased all my Basal rates and it's still like it's just gone up and I don't understand why
Scott Benner 1:35:00
Alright, listen, I hear what you're saying. i It's maddening. It is maddening.
Stacey 1:35:07
It's frustrating. We took
Scott Benner 1:35:09
art into college. Her settings were rock solid. I have no idea what happened. But suddenly her settings were way too strong. We had to cut them in half like no lie her Basal went from like one or 1.1 an hour to like point six, her insulin sensitivity from 42 to 70. And then four or five days later, her blood sugar started going up again. And so we we were scared to like I was scammed We Who the hell's Wait, it was me. I didn't want to my talking about. And so I didn't want to put it all the way back up because I got scared. So I kept moving it up incrementally. And finally, like two nights ago, I texted and I was like, hey, FaceTime me and share your screen with me. I'm like, we're putting every one of your settings back to where it was before you got to college. And we put them all back and last night and today we're finally back to what we were used to looking at. So I and trust me if she was here, I would have done it quicker. But there were so many new things happening. I was a little happier for it to be higher than lower while we were figuring stuff out. So she had a really bad time of the first few weeks of school. Okay, because because of a roommate thing, which I don't think I'm gonna be able to talk about on here. But yeah, things are kind of getting better now. So
Stacey 1:36:25
anyway, all right, as long as they are getting better. That's all that matters, Stacy. I
Scott Benner 1:36:29
gotta go. I gotta jump in the shower because I'm interviewing a guy from Dexcom in an hour and a half about the g7.
Stacey 1:36:34
Isn't he lucky? All right. Well, I can't wait to hear that one as well. Thanks. Thanks. You
Scott Benner 1:36:38
have a great night.
Stacey 1:36:39
Thank you. So you
Scott Benner 1:36:47
What did I tell you about Stacy? absolutely delightful. You know what else is delightful? Omni pod Omni pod.com forward slash juice box index. Com dexcom.com forward slash juice box. Have you checked out touch by type one they sponsored today's episode? Give them a shout. Touched by type one.org Find them on Facebook and Instagram. Actually, you can find on the pod Dexcom there too. But it's better if you click on my link. I mean, by better I mean, for the podcast and for you because you can't really order something through Instagram. Alright, I think I've been clear. Anyway, I love this episode. I hope you did too. Now hurry up and go Google Brad Pitt's brother Stewart. I don't really think he's a real person. If you enjoyed this and you think you would enjoy having some community support, find the Juicebox Podcast private Facebook group that now has almost 40,000 members at it. Juicebox Podcast type one diabetes, I don't care what kind of diabetes you have. I don't care how you eat, head over there for support community and friendship Juicebox Podcast type one diabetes on Facebook, a completely private hang completely free Group. If you've enjoyed this podcast, share it with someone else who you think might also enjoy it. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast.
Please support the sponsors
The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here. Recent donations were used to pay for podcast hosting fees. Thank you to all who have sent 5, 10 and 20 dollars!
#928 Juicebox Assistance
Scott provides “the 4-1-1”—a helpful user’s guide for all the elements of the Juicebox Podcast.
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or wherever they get audio.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends, and welcome to episode 928 of the Juicebox Podcast the episode where you get the 411
It's been a while it's not a song, it's been a long time. It's been a while. Lyrics stained Oh my God, not embarrassed. Anyway, it's been a while since I could hold my head up high. Because I haven't been doing what I said I was going to do, but not No more. No surgery, Scott's back to fulfill a promise. While you're listening today, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. No advertisers on this show today there's no ads doesn't mean I'm not gonna mention the advertisers. But there's no ads. It's going to be quick and easy, a short, thorough and informative podcast episode for you the Juicebox Podcast listener
in the interest of keeping this short, and because of the type of episode Liz, like I said seriously, no ads today, but I do want to remind you about the advertisers. I'm talking about Dexcom on the pod us med contour, G voc heipo. Penn ag one from Athletic Greens cozy earth.com betterhelp.com T one D exchange touched by type one, these are the good people who helped keep the podcast afloat. If you have the need for a purchase, or the desire to learn more, using my links are very helpful to me and keeping the show free the way it is. So there's links in the show notes of your podcast player or at juicebox podcast.com, where you can find the links in any number of other episodes. If you have the need, or the desire, please use my links. That is all for that. Let us move on now. Here's what I'm here for. Today I want to talk about how to navigate the website and how to navigate the podcast. We first did this in Episode 411. I thought I was clever. I was like cool. I'll make it the 411 because that's where you get help from on the phone. Right? This is going to be episode 930. Not quite as clever, but a needed update. So there are a number of series within the podcast. There's the after dark series, ask Scott and Jenny algorithm pumping, bold beginnings defining diabetes defining thyroid diabetes, pro tip, diabetes variables, mental wellness, type two diabetes, pro tip, how we eat. And actually even more than that. And it's getting to the point now where I mean, you know, let's be honest, the podcast has almost 1000 episodes. It's hard to scroll right, you need to know where you're going. So there's two ways. Like say I'm just going to pick up a series. Let's say you want to learn more about the algorithm pumping series or bold beginnings, let's say bold beginnings because I clicked on it. So you can go to juicebox podcast.com. And there's a menu at the top. You can just click on bold beginnings. Right there. You're gonna say it's like, Hey, if you were just diagnosed with type one diabetes, the bold beginning series, bah, bah, bah. Now there's links, you could right away, go to Apple podcasts, Spotify, Ra heart, Amazon music, any, you know, you can use any player you want. But there's links there. For those right. Like if I clicked on the Apple podcast link, it would take me right to the show on Apple podcast, you'd hit follow. And just like that you'd be getting new episodes where you can just scroll down and listen online. I don't recommend listening online. It's not the easiest way listening in. Let's be honest, I don't nap is the easiest way to listen to audio. But there's a player there and it's got a list. It's got you know all the episodes in order in the defining. In the bowl beginning series 698 Is the finding bowl beginnings. It's the series start. And then 702 is about honeymooning and 706 is about adult diagnosis and on and on. You scroll through the player and you can see 711 712 715-719-2327 731 So all these are part of the series. Now you can just go back to your app if you want and search bolt beginnings juice box 769 And you'll find the episode called bulb beginnings community. Or you can listen right here by clicking on it. Look. I don't say that I clicked on it, the episode came right on, you can do that too. Same goes for algorithm pumping, ask Scott and Jenny after dark. All of them are right here. Let me give you a little rundown of what each of them are. The after dark series is more topics that something potentially upsetting to someone or racy may have been set in the episode. So we kind of tagged them after dark so you have an idea like maybe I wouldn't put this on in front of my kid while we're driving to school. The after dark series began back in 2019. With a drinking episode. It goes on to do a weed episode trauma and addiction sex from male and female perspective, we have type one diabetes, depression, self harm, divorcing, co parenting, bipolar disorder, bulimia, other eating disorders, PTSD, being the child of divorce, like I can't read them all to like, but it goes on and on. There's, gosh, a lot of episodes right up until one that came out recently 921 with a lovely woman named Liv who has type one diabetes. That's what's in that series. They don't run concurrently. In the episode, none of the series run concurrently. Excuse me in the podcast, it's not like episodes, one to 10 or afterdark, and episodes 11 to 20 or something else, I don't have the power to do that. So this is the best way we can kind of put them all in one place. If you are a member of the private Facebook group, in the feature tab at the top of that group, all of these lists exists, so you can go check them out there as well. Anyway, ask Scott and Jenny. That is listener feedback listener sending questions and Jenny Smith and Jenny Smith. Of course, a CD who has had type one diabetes for like, forever, like 35 years or something. Jenny's been on the show forever. We started doing ask Scott and Jenny back in 2019. There's a ton of them. Algorithm pumping covers T slim Omni pod five. What else? The loop? Android APS the way what's the company you know the one that you know them? Why or was the word not by Medtronic. Right the Medtronic pump Sorry, I'm trying
all kinds of stuff in there. Resetting your Omni pod five. We have this great episode called control IQ ninja we really will up your game about control IQ. Rise of the Machines is about what's upcoming with DIY algorithms as is APS Wilkie. There's a ton of them in their bold Beginnings is like the Pro Tip series for the very newly diagnosed I love this one. We just made bold beginnings back in 2022. It begins at episode 698 and goes on to the last one it looks like it's December 8 2022 Episode 805 bold beginnings illness ketone management. It covers things like insurance, family treating low blood glucose technology and medical supplies, journaling community guilt, fears, hope expectations, exercise, school flexibility, stalking, carbs, Pre-Bolus thing and so much more. I'm not kidding, there's still more I could have kept reading. Then there's the defining diabetes series. This series is terrific. It's it's older, it's been around since again 2019. So many shorter episodes 510 15 minutes, defining terms that you'll use everyday with diabetes terms that while after you've had type one for a while you'll be like I know what honeymooning means. But you might not know when you were first diagnosed. You want to know what standard deviation is? Brittle diabetes, insulin resistance, rage, bolusing fat and protein rise all kinds of stuff. You might be like, Scott, I don't know what you're talking about. But in a few minutes, you will and then you'll be surprised how that information will help you take care of your type one and oftentimes type two diabetes if you use an insulin, a lot of this cross applies. Beautiful thyroid series Dr. Addy Benito comes on explains thyroid front and back. Many of you may have thyroid symptoms and levels that need treatment. But your doctor will say to you like oh, that's in range. If you've heard that before, go listen to episode 413 and find out why you maybe shouldn't accept that as an answer, and then learn in the rest of the series about thyroid. diabetes pro tip crown jewel for the podcast. I think you listen to the diabetes Pro Tip series, you're gonna have an A one C in the low sixes maybe with very little trouble. diabetes pro tip.com is another way to get to it. It begins in Episode 210 In your podcast player and goes online and there's a diabetes pro tip episode that went up just like two months ago. Episode 899 diabetes pro tip transitioning, honeymooning female hormones, weight loss, postpartum glycemic and why are people calling me Hold up? Have your back. Sorry, that was my mommy. Anyway, the Pro Tip series is fantastic. I'll tell you a little more about it at the end. There's a beautiful collection in the mental wealth series of conversations with caregivers adults, a therapist named Erica who has had type one diabetes for over 30 years. We talked about everything, diabetes related and more in that wonderful series that began back in 2020. And just went up with another episode the other day where actually I talked to Erica about some stuff that's bothering me. There's a type two Pro Tip series. This is a fairly new add to the Juicebox Podcast. We learned that a lot of people using insulin but type two were listening to the show and we wanted to give them their very own series. This is brand new for 2023 It begins at episode 860 diabetes Pro Tip series intro covers things like guilt and shame medical team fueling plan diabetes technology, getting moving GLP one medications metformin and insulin. And there are wonderful conversations with people who have type two diabetes, regular everyday people like Michael John and Leanne and some people who were famous, like the comedian, Billy jarred is a guard del It's Billy guard out right from Mike OMalley. And Anthony Anderson, you know, Anthony Anderson, Rev. Ron was on. Just check it out. If you know somebody with type to pass this series on to them. There's the how we eat series where people come on and talk about all the different ways that people eat because if there's one thing for sure, I do not care how you eat, I care that you understand how to use insulin for what you eat. There have been people on talking about intermittent fasting flexitarian diet keto FODMAP, Bernstein, low carb gluten free plant based carnivore, vegan, we even had Jenny on to talk about how she eats. Check it out. It's all there at juicebox podcast.com. Or in the Facebook tab of the private Facebook group Juicebox Podcast type one diabetes. Now by the way, if you're not in that group, 40,000 members, it has something for everyone you can lurk. You can ask questions, you can answer questions. It's a wonderful, beautiful community. The dare I say, transcends Facebook. It's a very unfaced book like experience. People are very kind. The group is very helpful. It is very active. I think you'll like it. Alright, so that's what's in the podcast. Well, sorry, it's late at night. I got to drink something. That's the series that are in the podcast. Every day. There's a new episode of the podcast Monday, Tuesday, Wednesday, Thursday on Friday, we do a best of but Monday through Thursday, brand new, brand new content every day. But how do you listen? Well, Apple podcast is one way. If you have an Apple phone, that phone has the apple podcast app on it. Just find the podcast app search Juicebox Podcast, type one diabetes, and then follow or subscribe to it. You can also use Spotify, Google Play Amazon Music Pandora, Amazon Alexa even does it right? Anywhere you can get audio, you can get the Juicebox Podcast, find the show, and then follow or subscribe different apps use different words some say subscribe. And some say follow. I don't know why. What else do I have for you? Oh, if you're starting on the pod five, there's a Pro Tip series around the pod five juicebox podcast.com forward slash Omni pod five, wonderful three part series that will get you going with more success. When you start on the pod five. It's with Carrie forget Carrie is a CDE. And she actually she actually worked on some Omnipod five trials. So at the time that we recorded this series, there was a lot of information and carries had already and she made the most of it. Fantastic series. If you're starting with Omnipod five, definitely check it out. There's a blog at juicebox podcast.com. There are. Let's see every new episode that goes up is at juicebox podcast.com. Every new diabetes Pro Tip series there's links to the sponsors there. There's the bold beginnings, recent articles in the blog, defining diabetes, the variable series The after dark, the algorithm popping it's all right on the front page. You don't even have to click on the links at the top if you don't want to. I'm trying to make the podcast as accessible as possible. for you. So go ahead and join the private Facebook group. It's invaluable. And by the way, completely free. Never, by the way will I charge you for anything, you don't get charged for the podcast, you don't get charged for the online support groups. You don't get charged for anything. The podcast is ad supported. That's how I make my living. The content is yours for free, the support is yours for free, there will never be a charge to listen to the Juicebox Podcast and I do not make episodes or content that gives you just a little bit of information, and then tell you go click over here and become like a Gold member or pay once a month and then you can get the rest of this. I don't do that. I'm not trying to sell you a coaching plan. I am not trying to sell you anything. I'm just trying to get this content to you. We let the advertisers pay the bills, and you guys get the content. That's how I have it set up. I'm proud that it set up that way. And I hope you take advantage of it. Other than that, I'm on Instagram. I mean check it out if you want to. I'm old so might not be that exciting for you. But if you use Instagram a lot we do put information up there same with Tik Tok. But Facebook, you know, there's a public page two called bold with insulin. The private group is called Juicebox Podcast type one diabetes. There's just so much information there. I jump in and answer questions. Talk to people every day. I'm in there every day. I hope to see you there. Okay, find an audio app subscriber, follow the podcast, check out the private Facebook group, become a member. Listen to the show. If you need any help, go to the Facebook group and ask for help. If you need any help, go to the website and send me an email and ask for help. I will be more than happy to help you get started with the podcast. Now here's the why. Why would you want to listen to the podcast? I'm going to share a couple things with you and a Javi out of here in a few minutes. We recently did a survey of 11 143 listeners of the Juicebox Podcast. Do you frequently listen to any other diabetes podcasts? The answer? No. 1071? Yes. 73.
Next question. On average, how many episodes of the podcast you listen to every week 801 People listen to between one and four episodes, loads per week 11 to 30 episodes 25 people a week 64 respondents said I've listened to every episode, who was helpful in reducing your overall feelings of fear and anxiety related to diabetes. The options were medical professionals, the Juicebox Podcast and its Facebook group, or other print and online materials. The scores were out of 6000 I know that's weird to think about. But Juicebox Podcast 5803 medical professionals 3374 on line materials and other print materials. 2735. Overwhelmingly, the Juicebox Podcast which shows my comprehension and literacy levels around diabetes management improves with the knowledge and insights that I gained from again Juicebox Podcast beats those other two significantly beats them in this survey, who has been a dependable and essential resource for you to maintain and improve your diabetes management. Again, far and away Juicebox Podcast and its Facebook group I can go on and on. There's no need to they're all going to say the same thing. People who listen to the Juicebox Podcast are supported by it. They are helped by it and they leave really wonderful reviews for the podcast. I'm gonna read you just a couple and then I'm gonna then that's it. You're out here okay. I'm gonna go all the way back to the beginning of the show. 2015 2015 is when the show started. Five Star Review great information. I am an adult type one diagnosed last year I don't have kids yet. And I hope that when I do my kids won't have to suffer through this learning some great tips. Even my management plan is different since listening to Juicebox Podcast if you deal with type one in any way, take the time to listen 2016 randomly chosen review from 2016 My favorite type one podcast I listened to a number of podcasts but the Juicebox Podcast tops them all. The host Scott Benner which is me is always providing quality content to encourage me on my journey with my newly diagnosed doctor. He's funny and laid back but give some seriously good tips on management. Funny, okay 2017 Finding this podcast completely changed my life having type one is the worst. But what I've learned from listening to this podcast is that I am not alone. That it is possible to live a normal life where diabetes isn't something you completely dominated by that you're completely dominated by. Thank you, Scott, for all you do. I've learned so much. I'm definitely being bold with insulin and smarter with insulin went from a one C of 10 to five Only nine in three months. And that's due in large part to what I've learned from listening to this podcast. I was 20 I suppose that 2017 2018 informative, comforting, much appreciated, listen and learn. The learning gleaned from this podcast is unmatched. No doctor or support group or book can teach you more about type one diabetes and listening to the stories of others and Scott's experience. I feel so lucky to have found this podcast so early in diagnosis. Tomorrow, I'm gonna give you one more is the anniversary of my 28th year with type one diabetes. In the past 12 months, I've been listening to the Juicebox Podcast that has been the most productive year yet this podcast has had a huge role in that productivity. I've gone from a one C around nine to what I'm hoping is going to be 5.8 The next time I check. I seriously could read these all day. I think it's getting a little repetitive. But right here in 2023 Just the last review I got. I've been binge listening since I found this podcast, my son and husband both have type one. Man, I wish I had this when my son was still living with me at home and learning and I'm sharing and we're going to get our a one C's lower. This podcast is for people who have diabetes, and for the people who love them. I don't care if you've had type one for 30 years, or three minutes. That Juicebox Podcast is here for you. juicebox podcast.com, type one diabetes, type two diabetes, gestational, there's a whole pregnancy series I forgot to even tell you about it's fantastic. Check it out. Go find the private Facebook group Juicebox Podcast, type one diabetes, join the group. See what you can get out of it. That's it guys. That's how you listen to the Juicebox Podcast. That's why you would listen to it. That's what you would listen to. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. As I said earlier, the show is supported by longtime sponsors, you can get a Dexcom G seven@dexcom.com forward slash juice box. Learn more about the Omni pod dash and Omni pod five at Omni pod.com forward slash juice box. You can get your diabetes supplies the way we do from us med us med.com forward slash juicebox get yourself an accurate and reliable blood glucose meter at contour next one.com forward slash juicebox are you carrying glucagon I hope you are. Please consider the G voc hypo pen, je voc glucagon.com forward slash juicebox. And if you'd like to support a fantastic organization helping people with type one diabetes, look no farther than touched by type one.org. To see some of the most comfortable loungewear clothing towels and bedding that I've ever used. Go to cozy earth.com and use the offer code juicebox at checkout to save 35% off your entire order. Get a free one year supply of vitamin D as well as five free travel packs with your first order of ag one from athletic greens at my link athletic greens.com forward slash juicebox and you can take care of yourself@betterhelp.com Save 10% off your first month of therapy online therapy@betterhelp.com forward slash juicebox
Please support the sponsors
The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here. Recent donations were used to pay for podcast hosting fees. Thank you to all who have sent 5, 10 and 20 dollars!
#927 Omnipod 5 is a Great Teammate
Carries child has type 1 diabetes and she is here to talk about Omnipod 5.
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or wherever they get audio.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends, and welcome to episode 927 of the Juicebox Podcast.
Today I'm going to be speaking with Carrie. She's the mother of a child with type one diabetes, who is using Omni pod five and we're going to talk all about it. While you're listening. Please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan, or becoming bold with insulin. Are you looking for super comfy sheets, joggers and towels, check out cozy earth.com and use the offer code juice box at checkout to save 35% off your entire order. If you want to take the same green drink that I do every morning, ag one from athletic greens, use my link athletic greens.com forward slash juice box you will get five free travel packs and a year supply of vitamin D with your first order. And don't forget if you're looking for those diabetes pro tip episodes, they begin at episode 210 In your podcast player, if you're having trouble finding them, check out juicebox podcast.com or the feature tab in the private Facebook group Juicebox Podcast type one diabetes
this show is sponsored today by the glucagon that my daughter carries G voc hypo Penn Find out more at G voc glucagon.com. Forward slash Juicebox Podcast is sponsored today by better help better help is the world's largest therapy service and is 100% online. With better help you can tap into a network of over 25,000 licensed and experienced therapist who can help you with a wide range of issues. Better help.com forward slash juicebox. To get started, you just answer a few questions about your needs and preferences in therapy that way better help can match you with the right therapist from their network. And when you use my link, you'll save 10% On your first month of therapy.
Carrie 2:19
My name is Carrie. I'm the mother of a six year old type one boy named Danny.
Scott Benner 2:26
Danny is six. How long has he had type one.
Carrie 2:30
We just had our one year on October 23 diagnosis five he was diagnosed when he was five.
Scott Benner 2:36
And what I what I will do here to try to get around my poor pronunciation is I write down the word carry with a why like carry the weight
Carrie 2:46
as opposed to carry Fisher
Scott Benner 2:49
or no as opposed to like my I might hit the are too hard. And say carry if I'm not careful. You just I just looked at my brain doesn't work around words that well. So this is what I have to do. are you pressuring me already? I don't I don't do this. It's Friday, you know? Okay, so tell me a little bit about Danny's diagnosis. He's a year ago. Do you have any other type one in your family autoimmune? Was there any reason to think this was gonna happen?
Carrie 3:24
Me and stuff on my husband's side not with my husband.
Scott Benner 3:29
There was I thought the result pregnant pause but you were just gone for a second. So can you start off?
Carrie 3:35
Sure. So no diabetes in our family. My husband's side has some non type one autoimmune stuff. Hashimotos celiacs lupus, but nothing. I mean, this was not on our radar, like not even a little bit. Right. So this
Scott Benner 3:54
is your husband's fault. I got all my husband's fault. Yeah. What else does he do wrong?
Carrie 4:01
We're gonna have to do a whole nother hour on that.
Scott Benner 4:04
All right, well, it's not let's pin the poor guy down now. So this is not something you're not sitting around thinking like, Oh, everybody in our family gets type one. So this is definitely gonna happen. So then how do you figure it out?
Carrie 4:17
So we noticed he was paying a lot. And we noticed it mostly at night. We both work full time. He's at school all day. We didn't have a lot of observational touchpoints during the day. But at night it was just he was soaking through the bed kind of multiple times a night but he was he was otherwise totally normal, fine and healthy. Because it was the end of October. We know people on Facebook and such that have type one in their families and they were raising money for JDRF which the walk in our area happens at the at the end of October and I had donated and sort of the social media algorithms. Were putting diabetes stuff on my phone as I was like scrolling through. And about five days after we noticed he was peeing a lot. I texted my husband and I was like, you don't think he's diabetic or something, do you? Because Facebook does, right? Because I've now diagnosed him. And my husband texted back, and he's like, I don't know, is, is peeing a diabetic thing. And I was like, well, apparently. And it kind of got, we're not once we focused on it, we got increasingly more concerned. And the next day, I reached out to one of these acquaintances that has a has a son with type one, and asked her if she would test his blood sugar.
Scott Benner 5:46
Well, that's how you figure it out. So the algorithm, the Facebook algorithm finally did something, right. Correct. It just kept so so seriously, like, the the idea of diabetes just kind of get kept being foisted on you by an algorithm? And that, that that really made you think about it.
Carrie 6:03
Yeah, I mean, it was late at night, he was in the other room changing Danny sheets and getting him back to bed for like, you know, what felt like the millionth time that we? And also I should say, I mean, we have, we have three little boys. So there's lots of reasons that one of my kids could be peeing a lot or peeing a lot at night. I mean, the weather was changing, it was getting cold, or, you know, you sort of rationalize it. 100 different ways.
Scott Benner 6:27
You know, how people pee the bed when it's cold out? Little boys? Do they really? Yeah.
Carrie 6:37
Like when, like when the air conditioning is on, like, there's definitely an uptick in our house and like nighttime accidents, for sure. I'm gonna
Scott Benner 6:44
say that's because those kids don't want to get out of bed and get cold in the bathroom. And they're just, you know, it'd be easier. This piece right here. Yeah.
Carrie 6:54
Yeah. So, so we, we suspected it, honestly, I thought it was going to be like, fingerprick rule it out. I didn't seriously think he had diabetes. They, you know, our friend tested him on there. They have a contour. They tested him. And they saw the reading as high which of course, I didn't know what that meant. And they just looked at me and they said, You need to go to the emergency room tonight. And I said, Well, you know, our doctors open on Sunday, let's just be you know, I'm sure it's okay. He seems fine. And they were like, no, no, now, like, leave your other children and go
Scott Benner 7:33
abandoned the other kids. Just go? Did they explain DK to you.
Carrie 7:39
So she did not explain DK to me. She said to me, when you get to the emergency room, tell them you think he's in DKA. And you will cut the line.
Scott Benner 7:48
Okay. And that works? Well, finally, just the worst way to get the front of the line you don't want to be in? Alright. Can I ask for a second? Have you and your friend never gone back over that moment? Was it hard for them to tell you that?
Carrie 8:04
Um, we haven't talked about I mean, that at the time, she was, you know, the mother of another kid in the class of one of my other kids, she we didn't know each other. Well, we've become obviously much closer over the year she has given us you know, some some wonderful advice and things like that. But we we haven't really talked about it other than just sort of how crazy the world works sometimes. Right that, you know, she she had been posting I donated we we connected like I thought to call her it all just sort of, you know, the universe does funny things sometimes. So
Scott Benner 8:44
sucks. Doesn't it be an adult? It's all I could think when you were talking about texting with your husband. Like, none of us are like 20 years old at a concert and thinking like, you know what'll probably happen one day, I'll probably be texting a man I haven't met yet who will be in the other room of my house, telling him how one of our children probably has diabetes. It sucks like that? Yeah. Yes.
Carrie 9:05
Being an adult sucks. Being an adult with a kid who has type one has sucked more than I thought being an adult could be.
Scott Benner 9:14
Well, I agree. I'm right there with you. Okay, so you get to the hospital D cut the line.
Carrie 9:21
We went in pretty quickly. You know, my son at that point, was absolutely hysterical. I mean, from his perspective, he was basically pulled off a little league field and someone stuck a needle in his finger and now we're at the hospital and he was screaming his head off. Screaming at the nurses, you're not going to take my blood, you're not taking my blood and the nurse looked at me she's like, you know, we're gonna take his blood, right? I was like, I know it's okay. And so they they fingerprint him in the ER and it was like 663 or something like that. And right then we were, you know, moved into the back room. Men and kind of off to the races with a diagnosis.
Scott Benner 10:03
What position does he play? He's six. Oh, they just shut him out on the field
Carrie 10:09
right there like right side or left side close or far. Do you want to
Scott Benner 10:13
run far this time this evening? Or do you want to run a little bit? All right,
Carrie 10:16
I think I think they have like pitchers helpers, the position that everyone wants to be
Scott Benner 10:21
standing next to the coach. Yeah, exactly. That's what kids want to do. They want to be the pitchers helper.
Carrie 10:27
Well, because that's like the kids can't really hit the ball. So straight up the middle kind of ball
Scott Benner 10:33
goes. Yeah. So your kids suck. i My kids were great when they were just kidding. That's exactly what happens to it's like the was T
Carrie 10:44
ball. Like they weren't even there wasn't even any velocity on the pitch to help them.
Scott Benner 10:49
I understand. I'm kidding. No, that's the at that age. That's the only position where you get the feel the ball. Yep, yeah, it's pretty. And then everybody else who stands out there going, is that
Carrie 11:00
baseball really fun, really exciting.
Scott Benner 11:02
I watched I'll never I don't think I'll ever forget. I don't know the kid. And I have no idea what his name is, or you know where he is now. But around that, like eight year old time, was the time when they would give the young kids one nighttime game at our little league field so that they could come at night and play under the lights and everything. And it brought out into the middle of summer. And it brought out these weird moths. I don't know. Like they were just big and weird. And one landed in right field. And the kid just walked over to it. And He squatted down. I mean, the game is happening. You understand? You know, it's it's not like in between the batter or anything. He squats down. He's poking at it. He picks it up. He's got it on his hand. He's got it up in his hand. Now he's examining it in his face. And I'm like, I don't like this kid is long for baseball, you know? And sure enough, he was he left pretty quickly after that. But I mean, that was that kind of encapsulates what happens when the ball can't go past the pitcher's mound. Everybody else is just in a coma. So it's fun when they get bigger. Do you think we'll keep playing?
Carrie 12:06
He's pretty all in on soccer. love soccer. That's good at soccer. I'm not sure he has the attention span for baseball, but but we'll see. You never know. He's only six I don't have to plan is his professional sports career just yet.
Scott Benner 12:21
I am going to give you one great piece of advice. Okay. We'll move past this. This is for everyone. Listen, it's the best piece of advice you're ever gonna get about sports and kids. Hope that your children are good enough to play and have fun, but not good enough to dream about more. I'm telling you, that's the best advice you're ever gonna get. Right there just like that. Yes, because none of your kids are going to end up being 662 140 pounds and stay athletic. Like that's a random thing that happens to a random person. And you can be really good at something and, and still not fit the mold. And it's a lot of time and effort to put into something. So anyway, that's my best advice. It was given to me by a friend of mine, whose son was pitching at a D one school. And he said, my biggest regret was that he was this good. He's like, I wish he was just a little less than this. He's like, because he would have, he would have played in high school, he would have went to some nice little college, he would have played baseball, he would have graduated, he would have known it was over and that was it instead. Here he is, you know, 21 years old can throw 94 miles an hour and nobody cares. Right? Yeah. So anyway, there's my advice, and it bummed me all the hell out. But it'll save you a ton of money. If you listen to me right now get the kid at chess lesson. You know, and I don't know, some home weights. That's it. That's your sport. Go do something else with your time. Plus, I have a permanent farmer's tan, which I don't think I'm ever going to get rid of
Carrie 13:57
and being out watching your senpai right.
Scott Benner 14:00
Plus, it's the only thing I can imagine. Like, Carrie, I had somebody asked me recently, what I wanted to do in retirement, which was off putting because I'm 50 But I still you know, we're trying to financially plan. So I'm like, okay, and all I could think was watch Coldplay baseball. I couldn't think of anything else. Like, what else do you want to what do you want to do in your retirement? And it just popped into my head? I'm like, I want to watch the whole play baseball. And then I was like, and the guy said, Do you want to travel? And I'm like, I'm like, we'll be there playing
Carrie 14:34
baseball. Stadium to stadium. What kind of trouble? We're talking and I don't
Scott Benner 14:38
want it to be like some sad adult League. Where you don't I mean, like, I'm like, I wanted to be playing baseball. Can that happen? The guys like, I don't know, man. TFA I was like, Alright, I was like, just save as much money as you can. We'll figure it out later. I'm sure what's gonna happen is I'm gonna save as much money as I can, and then die. I'd give it to somebody else. That's about how I imagined This is gonna go. Alright, I'm sorry. Anyway, you are in the hospital, your kid is yelling at people. How long do you have staying in the hospital? What do you leave with as far as understanding?
Carrie 15:12
Okay, so he thankfully it was not in decay. We caught it sort of very early, I guess on the spectrum of how these things go his agency what wasn't crazy. So we, we were admitted for a few days, you know, sort of whatever the standard is one of the first pieces of advice besides tell them you think he's in DK to cut the line that our friend gave us was refused to leave the hospital without a Dexcom. And I didn't even know what a Dexcom was. I like Googled it, watch the little video and told the nurse practitioner that was like, a sign to deal with us that I wasn't leaving the hospital without a Dexcom. And she was like, Well, I can't, I can't like I'm not allowed to show you how to do it. And we really want people to learn the old fashioned way, and blah, blah, blah. And I'm like, Okay, I'm not leaving without a Dexcom. So we got the Dexcom in the hospital, thankfully, and, and the truth is, I like can't imagine having gone home without it.
Scott Benner 16:14
How did you make that happen? If they were like, we don't do it that way.
Carrie 16:18
Um, I tried to find a hook where I could convince them that they had to do it. And my son goes to a small Country Day School that doesn't have a school nurse. And so I basically said, I can't send it back to school without the ability to remotely monitor him constantly.
Scott Benner 16:38
Very smart. That word, they were like, Oh, all right. Isn't that funny?
Carrie 16:43
She was like, Okay, well, I'll write the script, but I'm not going to show you how to use it. I was like, Okay, well, that's even dumber than not writing. Right? Like, okay, I'm just gonna give it to you. And like, so I watched some YouTube videos, and we put it on him. And yeah, yeah,
Scott Benner 16:58
I mean, I don't think I'm supposed to say this about any of the products that are advertisers on the show. But this stuff's not that hard to figure out. Right? Yeah. You know, I read, the YouTube video works great. You could call me I could have explained it to you in three minutes, you could have called your friend, they could have hadn't found
Carrie 17:14
you yet. I found you shortly after, but you were not yet in my life. Oh,
Scott Benner 17:18
when does that happen?
Carrie 17:20
I think a week later, a week after we got out of the hospital, you know, I was doing what they sort of tell you to do, which is haul their helpline and talk to a different doctor than the one that's been dealing with you. And talk to them about changes and stuff. And they lost me at post bolusing. To be honest, it didn't take me that long to figure out that, that takes insulin a little while to work. And if you're constantly dosing at the end of meals, they that you're gonna, you're gonna have a problem. And so I asked them, I said, Well, why are we dosing him after the meals? Why aren't we dosing him before he eats? And they're like, Oh, well, like that comes later. And I was like, Okay, you're managing me. So I need to stop talking to you and do some Google searches and try to figure this out on my own. And that's what I did.
Scott Benner 18:13
Yeah. So you, you felt what was happening very quickly, that they were feeding eggs they were being spoon feeding you information slow. Yeah, yeah. And you were like, Alright, I want to get to the other part. Now.
Carrie 18:25
Let's fast forward, the management, you know, the managing me and let's talk about how I'm actually going to, like, manage my child,
Scott Benner 18:31
what was the like, what was the post meal spike looking like?
Carrie 18:38
Read hundreds, before we started Pre-Bolus, saying, I mean, pretty significant. You know, I had some concern when we started Pre-Bolus saying he's six, what if he doesn't eat all that we think he's gonna eat and stuff. But I got pretty comfortable that there wasn't a problem that juicebox couldn't fix. And that it was worth it. And so, I mean, we haven't seen barring pump failures and things like sort of just sort of technology happens. We haven't we haven't seen numbers like that in a very long time.
Scott Benner 19:13
Yeah. I sometimes look at the podcast as a whole. And I think it's just really a message about common sense around like for ideas. And I and I wish there are days I wish I could figure out a way to just say it one time, in 20 seconds, and make one episode just leave it up. You don't I mean, and and I feel like I tried to say it sometimes like that. I'm like, Look, here's what it's about. It's about timing and amount. It's about understanding the impact of the food like that kind of stuff. I know that you need the bigger conversations to understand it and everything. But it mean when that's the truth, that they're really just these couple of things you have to do to manage a meal and people are busy telling you to do it, opposite of how it works, which leads You just just I don't want to start you down this path of like, it's like destruction, it's like, we're never going to figure this out, because you've put me on the wrong path.
Carrie 20:10
Right? And it changes your expectations. I mean, you've talked about expectations in a slightly different context. But if you if you start to think like, Okay, well, I'm seeing a spike to 300, and like, the medical team is okay with that, then you start to think that that's actually where your child should be or where you should be aiming to get your child.
Scott Benner 20:33
And it's not carry, it's not the process. That's the problem. Like I understand the the slow start. And let's give you some of the information now and some of the information later, like all that makes sense to me. The problem is that during that, during that time, someone forgets to explain to you, this isn't how it's always going to be. And here are our expectations moving forward. For now, it's going to look like this, but in the, you know, blah, blah, blah, or later, we're going to want it to be this way. And it's exactly what you're saying. It's, I remember it as clear as day from an episode, like from the first year when this woman said to me, they gave me a range up to 200. And I kept him here, but then it started to go up. And I thought, Well, okay, that's fine. It's only 130. And then it was 140. And I thought, well, that's fine. It's only 140. I mean, that's only 40 points higher than 100. And before you knew it, she was at 200. Gun. Well, 200 is only 100 points higher than 150 or 50 points higher than 150. And I was fine at 150. And she just kept talking herself into the numbers being higher being okay. And I thought that's how people's minds work. Like that's how people gain weight. That's how people you know, do hard drugs, like I'll just do a little coke after work. And then then you don't I mean, like, it's like that kind of thing. Like, everyone thinks our brains are. I don't know why. But they're wired like that. And so the process coming out of a hospital, most hospitals with diabetes is just putting you in a bad situation where eventually you're going to be like, I'm just doing heroin. It's fine. You don't eat meat like that really is. I don't, I don't snort it. Like you don't I mean? Like, like, at least I'm not doing this. And then the next thing you know, your kids blood sugar's to 300 after every meal and you're like, Well, this is what it does. It's okay. The guy said it was alright. So I hear you are Well, I'm glad it hit you that way. You find the podcast, I'm talking in your ear, your blah blah, blah. Now we're gonna fast forward a little bit like through diabetes stuff too. He gets a pump
when you have diabetes and use insulin, low blood sugar can happen when you don't expect it. G voc hypo pen is a ready to use glucagon option that can treat very low blood sugar in adults and kids with diabetes ages two and above. Find out more go to G voc glucagon.com. Forward slash juicebox G voc shouldn't be used in patients with pheochromocytoma or insulinoma visit G voc glucagon.com/risk. Hey guys, just jumping in to remind you that one of our sponsors better help is offering 10% off your first month of therapy when you use my link better help.com forward slash juicebox that's better. H e l p.com. Forward slash juicebox. Better help is the world's largest therapy service. It is 100% online boasts over 25,000 licensed and experienced therapists and you can talk to them however you want text chat phone or on video, you can actually message your therapist at any time and schedule live sessions when it's convenient for you better help.com forward slash juicebox save 10% On your first month. Links to all the advertisers can be found in the show notes of your podcast player at juicebox podcast.com or just type them into a browser betterhelp.com forward slash juice box Chivo glucagon.com forward slash juice box when you use my links you are supporting the production of the podcast and keeping it free
Carrie 24:11
he gets a pump so we switched endos pretty quickly after I found the podcast and found an endo that was sort of much more the technology is there let's use it let's get it in your hands there's no reason to you know quote do it the old fashioned way for some ridiculous amount of time. We had him on a pump we started it like right before the holidays in December so you know a month and a half or so after after diagnosis
Scott Benner 24:43
and tell me which pump that wasn't I'm sorry.
Carrie 24:45
So we did the dash. We you know we vacillated you know between the wonderful pump options that are out there and for my son the the two pumps were just you know, he'd been pretty great about The whole thing given that his world was pretty shattered to, and his one, you know, red line was that tubing, I'm not doing it.
Scott Benner 25:10
Okay, well, so you end up on dash, and you're listening to the podcast? How are things going as far as like, what are your goals? And what are you seeing as far as outcomes?
Carrie 25:22
We're doing pretty well. You know, 65 70%, in range in range being kind of the default, I hadn't yet figured out. That wasn't the range that I should be hoping for long term, but it was taking a lot of work. I didn't think our basil was right. I was a little bit lost on what to do about that. Listen to the episode got that nailed down. And I'd say, so we cruised along on dash until, you know, beginning of May. And we were, we were 70 75%. In range, more highs than lows, nothing super high. And, you know, once in a while, we get a glimpse of an 85 or 90 or 95%, and range. And those were, you know, days where I'd screenshot my, my phone and like, you know, pat myself on the back, but nights, you know, waking up two or three times a night was pretty common. We were we were micromanaging it. I was literally a full time paying Chris. Yeah.
Scott Benner 26:32
So when you hear about on the pod five, is that something you thought immediately about? Or did you take time to? Oh, yeah, okay.
Carrie 26:42
I was, I was thinking about, actually, pretty early on, and then found out that the Omnipod, five was close to approval, although there was this caveat that people had been saying that for a long time. And I thought that was, you know, it was worth waiting a little bit to see if that came down. Because honestly, it just seemed a lot less intimidating to me. I mean, remember to we hadn't, we hadn't been doing this that long. So it felt less intimidating, it felt a little more user friendly. And I'm, I'm a help desk person, like something goes wrong on like, my work computer or my work email. Like, I like that I have someone to call and talk about that with. And on that basis alone almost loop didn't seem like the right fit at this time. So
Scott Benner 27:33
I gotcha. Yeah. When when your email won't work. You don't sit around trying to figure out how to fix you're like, I'm just gonna call this guy at the number. Yeah, that's me. I'm a help desk. Let her tell me. I'm not doing this. So I understand. I absolutely do. And so you get on the pod five, when may 7. Oh, look at your camera, like came on Mother's Day?
Carrie 27:55
Oh,
Scott Benner 27:57
that's an easy way to remember. Okay, so hold on. June, July, August, September, October. Oh, wow. You've had six months, six months. Okay. Great. Tell me all about it.
Carrie 28:11
Okay, well, the important caveat here is that we got it. We were We were one of the first people at least as best I can tell on like Facebook, who weren't in the trial to get it, or endo hadn't been trained on it. They were like, we're not going to be any help to you. You got to figure it out. We'll write it at the time it was off label because my son wasn't six yet. Well, we'll write the script, but like you're completely on your own. You hadn't you hadn't done any Pro Tip series on this yet. So we were really like, open the box, read the manual, try to figure it out. And with the benefit of hindsight, I might have done our setup very differently and probably saved ourselves a lot of time and heartache. But we you know, open the box and put in our settings and had a lot of struggles at the beginning.
Scott Benner 29:00
Okay, so your settings where
Carrie 29:03
we put our settings in from dash, I mean, which were good settings for Dash but I hadn't, I hadn't appreciated I was too impulsive about the whole thing. I hadn't appreciated how the algorithm was going to work. I had been so jumpy about getting it and wanting to try it right away that I hadn't. I hadn't thought through or reached out to resources about strategies for setting it up. I literally just dumped my settings in in hippo and I was like, Okay, great. We're
Scott Benner 29:31
all going to sleep now. So over, everyone is over.
Carrie 29:35
We're done with diabetes. I told my job I was gonna come back full time I was like, this is the you know, next week maybe the week after will be good.
Scott Benner 29:43
Yeah, I'm probably gonna start running like marathons and I am gonna die it probably probably gonna get shredded. You know, maybe
Carrie 29:51
I'm gonna have all this time on my hands. What on earth am I going to do with myself?
Scott Benner 29:55
I think I should knit while I'm running. This is going to be wonderful. So in stat is what, let me guess. And if I'm wrong, of course, not me, is what you learned over time that your settings from a manual pump were a starting point, but that you were adding insulin so frequently and other places that really your settings were very weak.
Carrie 30:18
That's completely true. The other thing that we struggled with was, there was no real direction on let the algorithm work, let it learn, don't touch it, let it do its thing, right. And then he'd be at like 250 and climbing and I'd be sitting in the corner, having an anxiety attack and being like, I can't let it learn on its own. I must give him insulin. And, you know, and then being told, Well, you're gonna screw up the algorithm when you do that. And you've done that. And so now you've like, set yourself back.
Scott Benner 30:51
Isn't it funny? Because it's the beginning. And it is a it's a different algorithm. There are people who will tell you don't touch it. Don't do anything. Don't just let it we'll figure it out. And then there are people who will say no, if your blood sugar's high Bolus and right teach it that you need it, you need more insulin, which I believe is the is the line, right from my, from the nurse practitioner that was on my thing, right? She's like, if your high Bolus, it'll figure it out when it sees more insulin, but you don't know either of those things to be true or not true. So you're just sort of sitting there going,
Carrie 31:28
right, I'll go a few days where I'll let it do its thing, and he'll be high, and then I'll have a panic attack. And I'll be like, I can't do it anymore. And I'll give him tons of insulin. And then it didn't seem to work. And so, I mean, the first the first month was really, really tough. I mean, it was our it was our own fault, in that we weren't sufficiently educated and didn't have the right expectations and didn't know how to manage it. But once we went back to kind of basic principles of insulin and how things work, we'd started to get better and figure it out.
Scott Benner 32:01
Right? Listen, if it makes you feel any better. As soon as last night, Arden had a she knows what to do, like the meals at college are terrible, right? So she has to basically make a secondary Bolus for her meals that come out of the cafeteria. She has to it doesn't it doesn't matter how big she tells it. Like if she if she says, Hey, this is 70 carbs this meal. And you know, she's She needs a secondary Bolus later, if she would have held the same meal, it's 90 carbs, it still wouldn't matter. That's how crappy the food is, you know what I mean? And, and so you have to, I mean, you have to understand how these algorithms all of them end up working. And so for Arden, who's looping last night, she has this one at blood sugar, like two hours after a meal. And I'm like Arden, you didn't make the secondary poll. She's like, well, I'm doing my homework. I forgot. I was like, well, that's fine, but put an insulin right. And so I I can see on Nightscout what she did. And she just makes a Bolus. And I text her right back. I'm like, Hey, that's not going to work. You know, that's not going, what are you doing? Like so She's so busy with her homework. She's just she like throws in like a unit a half of insulin. As soon as she does that the algorithms like a unit a half, we don't need this turns off her basil. And that's probably what was happening to you, when you were putting in extra insulin, like you told the algorithm, these settings are going to work. And then you're like, No, no, here's a whole bunch of extra insulin. And it's thinking, No, I'm going to get this blood sugar back down based on our settings, except it never was going to because your settings were that far off, I guess for the algorithm, how long did it take for it to learn? Or did you did you bite the bullet and reset the controller and start over. So we didn't
Carrie 33:49
do a reset? We did go all in on the teaching it if he's high on bolusing if he's heading high on bolusing, we made all of our carb ratios, more aggressive. We started treating lows much less aggressively and really like micro dosing it because the you know, we then understood that the background, it's basil, the micro boluses had been shut off for a while. And so the what we used to dose on the dash to treat a low was going to spike him super high if we did it this way because there was no insulin circulating around in his system. And we started just thinking about it differently. Like not to not to use the sports analogy, but I've I've used this when other people who are just starting on the five have kind of reached out to me. It's a it's a great teammate. It's like a star shortstop. It's gonna do a really, really great job, but you still have to you have to be in the game and you still have to play the game and it's so required ers, you know, work and care. And it can only it can't do there's, you have to recognize what its limitations are and kind of jump in,
Scott Benner 35:09
right? I feel great about what you just said about learning how we treat low blood sugars when you're on an algorithm, because I'm starting to see a lot of people figuring that out online, which is, which is really good. But the idea of, you know, if you're treating a low it, one o'clock in the afternoon, but this algorithm has been thinking for the last 90 minutes, you're gonna get low at one o'clock in the afternoon, it's been taking your Basal way, and insulin away in one way, or in one fashion or another, probably for 90 minutes. So yeah, you're still drifting low, because whatever happened before, ended up being too heavy. But there's nothing there to resist when you put carbs in, in that scenario. And so all of a sudden, 15 carbs or juice box or something like that, is going to turn you into a it'll turn into 250. You know, instead of before, when your Basal had been running the entire time in the background and you were low. It's odd that that low blood sugar on a manual pump versus that low blood sugar on an algorithm. The number is the same. But everything that happened prior to it's different.
Carrie 36:17
And the effect that anything's gonna have on it is totally different, right?
Scott Benner 36:21
Because there's either more or less insulin, new insulin from baseline for the last 90 minutes, depending on which system you're in.
Carrie 36:32
We rely on you know, the, the PDM. For the Omnipod. Five, there's a way to kind of see how it's been micro Bolus thing. And we try to look at that before we make any low treatment decision or any Bolus, you know, to stop a high or to stop a climb. Because we like you have to factor in what the pump is doing and how long it's been doing it for.
Scott Benner 37:00
Yeah, I think I'm supposed to say that it's a controller not a PDM anymore. Sorry, no, no, I don't. I just I don't want to, I don't want to get a text. Like, you know, a week after this comes out. And somebody says, hey, at 34 minutes in your conversation with Carrie about on the pod five, she calls it a PDM. And would you mind? So I'm getting around that right now. My son
Carrie 37:24
calls it the doser. So you know, whatever. Oh,
Scott Benner 37:27
yeah, that's great. I know, a lot of public relations people who'll be thrilled to know that. Give me the picker and the dozer and let's get rolling here.
Carrie 37:36
Yeah, that's, that's six year old terminology for about
Scott Benner 37:39
right for me. Okay. So how long did it so is hindsight telling you that you didn't put settings in in a way that was going to give you success up front? Yes. Okay. So did you have you learned over time that what, what ended up being in those Omnipod five pro tip episodes is true. Like, for some reason, when that algorithm begins, the settings needed to be somewhere near 5050. Basal Bolus, and then it adjusts off that it doesn't it won't even keep doing that five minutes later. It just for some reason needs to know that going in.
Carrie 38:16
Yeah. And look, I mean, one of the things that we've struggled with me occasionally, you know, talk about with some frequency is like, Should we do the Hard Reset? Right? Like now we're six months in, we have all this knowledge that we didn't have at the time. But I don't know if so risk feels like, I've spent six months teaching this out what to do, and it's pretty darn good.
Scott Benner 38:39
This is why women stay with men. Right? Yeah.
Carrie 38:43
Yeah, I mean, it's, you know, it's a big, it's a big leap to take. So I'm not there yet, though. You could you could potentially get me there. If you if you thought that was the right thing.
Scott Benner 38:51
No, listen, if I listen, but I know is, you know, not going to be helpful to you probably but so to kind of go over that a little bit. You know, it's in the on the pod five Pro Tip series, which I did in conjunction with Omni pod and healthcare professional and they're actually I have to say, so they're, they're, they're, they're good episodes, like they'll really will help you. But the the algorithm once 5050. And I have to say if I had that conversation prior to starting on on the pod five, when we started her, I would have probably just taken her total daily insulin and chopped it in half. I think that's what I would have ended up doing. I think I would have just said like, I don't know, she gets this much insulin every day. I'll take half of that number divided by 24. And that's going to be our Basal rate.
Carrie 39:45
I mean, that's what we would like if we were starting this now with all that with the benefit of those episodes and that knowledge, that's what we would have done, but, you know, we we didn't have it and we're not anywhere near 5050 Um,
Scott Benner 40:00
Yeah, not not not to say that your son needs 5050. It's to say it's you really have to listen to it to hear to explain, but that's what the, for some reason, that's what the algorithm needs as it begins to learn. Right. Right. Right. So, and I don't, I don't know. Like, I don't know why it doesn't just, I don't know. It doesn't. Listen, I don't know, I didn't program the thing. So I don't understand how it works.
Carrie 40:26
It just is what it is. But in retrospect, given what we experienced in the first few weeks, it's easy to see why that it. It makes clear that what what you said in the in the episode about that is right. Like we were not at 5050. Our settings were at 5050. And that was a mistake.
Scott Benner 40:44
Okay. And so what you got out of that were spikes and meals,
Carrie 40:47
spikes at meals, she, you know, huge spikes with low treatments until we figured out that we were completely doing that wrong. And, but pretty stable night times, almost from the beginning. I'm not sure that without the stable night times, we would have stayed with it at that time. You know, I think we would have probably stopped it and then come back to it once like there was more kind of knowledge of how to set it up and how to get started with it successfully out there. But I was jumping in I wanted it and I wanted it now and you know, there's a price to pay for that.
Scott Benner 41:29
You were enticed by the sleeping? Oh,
Carrie 41:33
yes, it was good. I mean, really can't. And we haven't been at it that long. We were only sleep deprived for you know, from like October to May I can't imagine people that have not slept in years. How wonderful. Something like this would be. But like barring a technology failure, a compression low that screws things up. A sensor error, you know, a pump sight absorption issue, right? Something like on the technology, we all basically slipped through the night. Yeah, no, that's pretty great. It's really good.
Scott Benner 42:10
Yeah. Arden had the same situation with the Omnipod. Five, like almost immediately, like her nights are for really terrific. You know, actually, I've learned a lot about overnight since Oregon went to college because because she's so far away, excuse me. And you know, there's no way to help her and all that stuff. We did kind of dial back her her overnight numbers a little bit like, you know, I'm okay if she's overnight at 95 100 105 110. Like she because she's 13 hours away from us. And you know, my best bet to save her life. If, if something happens is a person who lives with her who may or may not be drunk, you know what I mean? So excuse me, when that becomes your reality. You're sort of like, alright, well, let me be a little more careful. But after the first couple days, and getting things figured out, like I mean, I should probably knock on something. But Arden hasn't had a low overnight, like the entire time she's been away at school. Yeah, it's huge. It's a big deal. So, so Okay, so that that kept you in the game a little longer. You're like, Alright, man, again, I'll figure out the rest if I get the sleep. Right. So what did you actually figure something out?
Carrie 43:23
No, I Well, I changed our changed our ratios, so that he was getting bigger Bolus is at mealtimes. But in an effort to raise the total daily insulin and compensate for what I viewed as like, a less aggressive than I'd like, micro bowl, I
Scott Benner 43:43
stop you for a second and so on the pod says that when you change that settings in the pump, when you put settings on the pod five, those settings, as soon as the algorithm begins to work, those settings are only for manual operation, that that is completely correct. Okay, so you're saying we might say you change ratios? You mean Sorry, you kind of started counting carbs differently.
Carrie 44:09
I started counting carbs differently so that he was getting more insulin per day than he was getting with our old.
Scott Benner 44:19
Right. So you, if I met, you said, Hey, carb ratio is one to whatever you thought it was, right? You see that not working? You can't just go tell the pump. Hey, magic algorithm, instead of it being one to 20 carbs, I want you to make it one to 15 carbs, because that doesn't change the algorithms opinion. Right? And so you started counting up a meal and going I think this is definitely 40 carbs, but I'm going to tell the puppets 50
Carrie 44:48
Right. I'm going to give him more I'm going to tell the pump that he needs more insulin on a daily basis so that when the pump is aiming for it's 5050 it's Thinking about the total bottom line number differently.
Scott Benner 45:03
But then after it figures that out, does it mess you up when you're counting carbs? Like you always have to overestimate the carbs? If no,
Carrie 45:10
then then you got to back it off. Okay? So the other thing that we I don't want to say like figure it out. But we started changing our Pre-Bolus time. We were we were militant, about a 15 minute Pre-Bolus. Scott said it's a 15 minute Pre-Bolus, the pro tip episode says it's a 15 minute Pre-Bolus, it must always be a 15 minute Pre-Bolus. And what we found was that, depending on how much might how active the algorithm had been in the background, leading up to the meal, a 15 minute, Pre-Bolus wasn't always going to lead to a successful outcome. And that, you know, whereas prior, you know, on the dash, let's say he goes, you know, iDose for a meal 15 minutes before he's 115 and flat, and I want him to be, you know, 90 Heading down when he's going to eat whatever he's about to eat. So I, I Pre-Bolus, for what I know, will get him there. If you take that same strategy on the Omnipod, five, what we were finding, and Danny is pretty insulin sensitive. So there's a caveat there. But what we're finding is that the algorithm would see him heading down, and would reduce or cut off the basil or the micro boluses. And if we could have him eating when he was 100, and flat or 110. And flat, there would still be insulin being given to him in the background. And that was leading to much more successful outcomes post meal time. So we started changing the Pre-Bolus time from 15 minutes, I'm really sorry, I know it's supposed to be 15 minutes, not
Scott Benner 46:58
supposed to be what they meant.
Carrie 47:01
But we we we have now sort of adjusted it based on what how much insulin, we think he has circulating his system based on the auto history. And it's been a lot more successful.
Scott Benner 47:13
And you've been making the Pre-Bolus longer or shorter, shorter.
Carrie 47:18
I mean, if he's high, we'll make it longer. Or if he's heading up, we'll make it longer because we want to give the insulin a chance to work. But if he's kind of where I want him to be after the meal, depending on what's if he hasn't gotten the insulin in a while in the background, we'll keep it around 15 minutes. But if the pump has been active, we'll make it we'll make it shorter so that he doesn't go low pre or during mealtime, right.
Scott Benner 47:45
Wow, you're good at talking about this? Do you know
Carrie 47:49
I've listened to you a lot. And I'm just trying to
Scott Benner 47:53
know I mean, you're good at explaining it. You know, it's it's a simple idea. And it gets lost on people when they make the switch from pumping to algorithms that there's nothing in your pump, when you're using a regular pump that says, hey, you're getting low. So I'll turn off your Basal insulin. And because of that, all of your experiences are predicated on a constant delivery of basil. And now your experiences aren't always predicated on that. And it's a leap for some people. And I don't know if it's just because they don't think of it that way. Or if they have just been if they if they really didn't know what they were doing before they just learned what to expect and how to handle it. Do you know what I mean? So I was very heartwarming to hear you thinking through all this and figuring it out. Well, today now six months later, what how's it going? I mean, do you spike it meals anymore? Did you figure that all out? It's it happens sometimes you know how to fix it. What happens? I
Carrie 49:04
mean, look, he's six. So so there are there are days where, where it's just total brilliance like Halloween, Halloween just happened. That's a that's a good example. He was he was 99% in range 80 to 150 as the range set the entire day. And given what went on that day. Like I pricked his finger when he was fine, because I didn't believe that the Dexcom was working, because it was it was that good. So there are there are stretches and days of like total brilliance. And then, you know, there are days when for whatever reason, were less successful. I mean, the variables are still there. It's not eliminating the variables. It's not eliminating a super absorbent pump site where he's gonna be low more. It's not eliminating the level of activity. It's not eliminating growth hormones like one of the things that we didn't know at the beginning, but we've learned is that the algorithm can't learn time of day, the algorithm is never going to learn that your kid goes to sleep and starts climbing at 10 o'clock at night, it's never going to learn that it can't. So that's where like, you know, you need to be the team player, and you need to come in, and you know that that's going to happen, you have to, you have knowledge that the algorithm doesn't that every night at 10 o'clock, our kid rises because of growth hormones, and we need to Bolus that we need to Bolus it early, and we need to do it aggressively. So, you know, in terms of in terms of outcomes, his his agency is great. His time and range average over 90 days is is 89%. And, you know, there are some bad days built into that. And then there's some real brilliant days built into that. And you know, I'm not, I'm not sure how to make it better, I have noticed that like, one of our struggles now is figuring out how to string together, more of the brilliant days across multiple pump changes. I think it's the learning nature of the algorithm, I don't know. And I don't think insolate has shared sort of the period of time that the pump considers in making adjustments to its own calculations, but you have to recognize that that's like an evolving thing. And I'd like to be able to stretch together more brilliant days in a row without a bad day in between. But I'm not sure how realistic that is,
Scott Benner 51:47
when all this technology comes out doesn't matter what company it comes from, I always try to remember how amazing it was to get a Dexcom the first time. And now in hindsight, I look back at it. And I think well that thing was not as accurate as it could have been. It was difficult to put on it the use of a manual inserter the Dexcom Did you know that you'd like put the sensor bed like on and there was like a tube that came off it with a plunger at the end. And you would actually have to like, like, boom, like push down on the plunger to get it to go in. And you know, like I look back on all that. And I think well with hindsight, that looks like a train wreck. But in the moment, it was the best thing I've ever seen. Yeah, it was the absolute the best thing I had ever seen in my life. And so I try to apply that idea to Omnipod five or blooper, anything that people I keep thinking like, imagine what its gonna look like a year from now, or two years from now or five years from now, like, this is gonna be amazing, you know? And you're not describing something that's like, oh, a train wreck you're describing? Yeah, yeah. And that's what I want to understand, like, compared to you doing it manually. So for a moment, take out all of your effort and your time and you're not sleeping, right, because we understand that you got saved all that stuff. Right? Just just management, just health wise, are you where you are before, worse off or better off?
Carrie 53:18
Definitely better, unquestionably better. You know, both on on a numbers basis, and also on my mental health in terms of the variables that I'm dealing with. I mean, I remember I listened to like your pro tip episode on like basil testing. I'm like, sitting there looking at my, like, newly diagnosed six year old, and I was like, No, effing way. Right. Like, like, it just felt so hard. And then the idea that you could nail it and then have to change it. And the beauty of the five is that it it kind of takes if you're just camping out in automated mode, which is what we do. Like, it kind of takes that away, like it eliminates the variable of whatever you think the Basal rate is or should be. And that's, that's really freeing.
Scott Benner 54:12
Yeah, no, I understand. Excellent. Well, that's great news. Like you're a, you're a proponent, that if somebody came to you and said, I'm thinking of getting this, you'd say, do it.
Carrie 54:24
Absolutely. Do it. Understand how it will work, right? Understand that it's the teammate. It's not going to carry the team, you have to be there, you have to be engaged. I think the auto history is really important. And factoring that into how you manage your child is is really important. And I think that there's, um, that on the low treatment side, I mean, we we made this chart for like his summer camp. He goes to like a day camp locally, and they have a nurse team that manages it and they've been managing kids with diabetes. His for a long time. And we roll in and they've never heard of the five before. And they're like, Okay, so if he goes low, we give them a juice box, right? And I was like, Wow, no, here's my, you know, Excel spreadsheet of different scenarios where you might treat with two carbs, or six carbs, or eight carbs. And I think if you can, if you can figure that out, and what works for your kid, and figure out the Pre-Bolus time, you know, are you going to have a flat graph, you know, flat at 110 or 100, every single day. I don't think that's a realistic expectation, or at least I haven't figured out yet how to make that happen. But, look, I mean, you high 80%, over a long period of time with sleep, almost doesn't matter what you have to do during the day.
Scott Benner 55:49
And your, your son's not eating like a pescatarian diet are some specific,
Carrie 55:56
if I told you what my son ate, it would make your skin crawl. He has Eggo waffles and pop tarts and pizza and cake. And I mean, we, you know, there's lots of different schools of thought for us and for our family at this moment in time. Keeping his normal as normal as it was, was really important, I think, for his mental health and his acceptance of this. So that's the choice we made and may make a different choice down the road, he may make a different choice, but no, I mean, like I, I can dose Toaster Strudels and not have a spine. Now,
Scott Benner 56:32
when I look at you, I have two things I want to say here. One, I'm going to say kind of sounds joking, but I'm being serious. On the pod.com forward slash juicebox. If anybody listening is thinking about getting an omni pod dash or an omni pod five, thanks very much. The second thing is, I I'm, I'm really stunned at how you were able to take my like not the Omnipod five Pro Tip series, but the other Pro Tip series, the bigger one, and you took the information out of it, and you did with it what I intended, which is you, you learned about it, and then you molded it into your life, and you extracted from it and built onto it. I know that people can hear them and think these must be the rules. But they're just a jumping in point, do not Don't be mean like you have to experience the rest of it that you have to apply it and watch it work and watch it fail and go, Okay, I that's really I don't know, I'm just very I don't even know what the word is, like, you're making me feel very good about something that I did.
Carrie 57:41
You should I mean, we, we wouldn't be even close to where we are now. Without that, and the fact that it can be applied to, you know, the fact that it can be applied to a new technology that didn't even exist when you were or at least didn't exist in your world, when you're making a lot of these episodes, insulin still works the same way. And it works the same way, whether you're on loop or on the five or anything else. And you know that
Scott Benner 58:11
that's great. It really is amazing. I'm, I'm so happy for you guys, first of all, but I don't know, like you say something out loud years ago, like this whole thing, like, you know, I used to say all the time, like managing insulin is about timing and amount, you have to use the right amount of insulin at the right time. And it holds true. If you're putting it in with a syringe, if you're putting it in with a pump, if you're putting it in with an algorithm, it all still is the same there are influences on your blood sugar, and there and and you know, that are carbohydrates or body function or whatever that are trying to push your blood sugar up. There are influences on your blood sugar that are insulin that are trying to put the push them down. And you just have to kind of keep those influences in a state of flux where they really neither of them can kind of beat the other one. And then that's what stability is. You know, and if you can wrap your head around that, then you're on your way. But I don't know I mean those protip series it's 2022 in November, I think they came out in 2019 or 2020 Maybe it so they're already two almost three years old and and that they applied to another Technologies. I'm just very happy today to hear this from you. It's it's interesting. I feel like I'm hearing my voice filtered through another person's life and then spit back at me if that makes sense while you're talking.
Carrie 59:37
Oh, that's that's great. I mean, I you know, I think some of in addition to the Pro Tips The one thing that I would say is you know, there are little nuggets in a lot of the other episodes that can be life changing. I mean, I I've said to other people that changing our ducks calm lines changed my life and rethinking about the way that you say Your own expectations is is also, you know, as the caregiver, your you know, our mental health matters to matters less but matters too. And, you know, the way the human brain works? I mean, you said at the beginning it, it, it's consistent. So
Scott Benner 1:00:16
yeah. Well, so do you feel like take all the diabetes stuff away? Do you feel better? Now, like than you did a year ago? Are you different?
Carrie 1:00:27
I mean, then then at diagnosis, yes. I mean, we, I recognize that, like, we're, we're early in this in this marathon that a lot of people have been plugging away at it a lot longer than us. And, you know, we sort of have this luxury of having the, you know, the best technology available now. And that's, you know, an incredible gift that I feel like I've given my kid. Yeah, I mean, look, are there days where I want to still sit in the corner and cry? Of course, absolutely. Like, both, you know, on a macro level, because he has type one diabetes, and also on the micro level, because maybe he's having a day where what I think is gonna happen doesn't really happen. But I think I'm getting better at it. And I think you do. At the beginning, everyone said, it gets easier. And I was like, That's BS, right? That's like when someone you love dies? And they're like, Oh, time will heal it. It's like, No, it doesn't heal it. I still missed the person. It doesn't get better, you just get better at it. Yeah,
Scott Benner 1:01:36
it's 100%. Right. Now, I mean, I don't know if you're quoting me, or if that's your experience. But yeah, that's, it's just right. diabetes is always hard. And, but there'll be a time when you have so many tools and so much experience that it's, you know, it's it's, I don't know, it's sort of like when you watch a sporting event, or, you know, you think God, how does that person do that? Yeah, I could never do that. But right, you know, maybe you couldn't, maybe you couldn't throw football 70 yards in the air, right. But you could find a way to get better at throwing a football and you might get you know, and then that would make the thing the task easier. And this is what happens it to all levels with people.
Carrie 1:02:15
And I'm hoping the week continued, that it continues to get easier, because I still feel like it's my full time job. And I'd like to get to a place where maybe I don't feel that way. But I think it's like important to know that it's, it still sucks, it's always gonna suck, it's always gonna be a lot of work, it's never going to be like under control. But you do start things get easier little things, we wouldn't let them have Toaster Strudels at the beginning, because I couldn't figure out how to dose for them. And then eventually, I figured out how to dose for them. And now he's happier because he can eat his crappy breakfast in the morning. And little thing, like those things get easier. And I'm excited to see how much easier they can get as we kind of go through this.
Scott Benner 1:02:55
Oh, the other, um, a couple weeks ago, art and I saw something happen with her blood sugar like it started to go up. But then it stopped. And it got like, whatever. I wasn't with her. But something hit her hard. But her Bolus hit hard back and then she leveled out. And she was good. And it didn't take long. Like it wasn't a big spike or anything like that. And I asked her later in the day, I was like, Hey, would you eat you know, last evening, like eight o'clock or something like that. She was oh, I got hungry. And the cafe was closed already. I couldn't get over there in time. And I was like, okay, she because I just had a bowl of cereal. And I was like, Oh, wow, I didn't ask her what kind I don't know what she ate. But I all I know is that my 18 year old daughter Bolus, a bowl of cereal, didn't go over 140 and didn't get low afterwards. Like, that's amazing. Because I can remember, I can remember standing in my kitchen, going, Hey, what do you want for breakfast? And then thinking in my head, don't say cereal? Don't Don't? Don't Don't Don't Don't Don't say that. You know, and, and then there's that, of course, there's an episode where I talked about where she got old enough, you know, when she was younger. And she was starting to understand her appointments. You know what I mean? We're in with the Endo. And then we got outside in the driveway. And she said, What could I do to make my agency slower? And I said, well, for the moment, if you could just stop eating cereal, that would be huge. Because I haven't figured out how to do that yet. This is a long, long time ago, you know, and, and she's like, okay, and she just stopped. That was it. And then I figured it out better. I figured out insulin in general. And then I started applying it to higher glycemic stuff and figuring out how to do that. And I mean, I wouldn't say that Arden probably has five bowls of cereal a year, you know, but at least we know how to handle it. Now when it happens. It's very cool. Carrie, is there anything we haven't said that you want to anything we've skipped or missed or that I haven't asked? I don't think so. We did it that easily. This was very good. I almost don't want to make this a long Are episode because it's so succinct. And you were so clear about it. Yeah, exactly. You'd come back later because you seem cool. I think we would like each other.
Carrie 1:05:10
I happen to be a Phillies fan as well. So I think I think we could get along very well.
Scott Benner 1:05:15
Are you in the area?
Carrie 1:05:17
I'm not but I went to college in Pennsylvania. Oh, no kidding. So I was surrounded by it for for a long time and didn't have a strong opinion of my own at the time about baseball teams. So I was happy to kind of sign on with what the group was doing. It would be
Scott Benner 1:05:33
hard to be here and not be a Phillies fan that's for sure. So why don't we just because it has to go somewhere in the episodes I will just tell you that the World Series is happening right now as we record this, the Phillies are down three games to to win the World Series are heading back to Houston for Game six. And my son and I actually went to the World Series last night, we went and watched the Phillies lose three toe. But it was one of those things that, you know, as soon as they got in, I said to him was like if we can find a way to go, we should go you know? And he's like, Yeah, okay. Like, like, you know, wasn't gonna get him to argue about that. I've never been to a World Series, I think he and I went to one, one national league championship game, maybe in 2011, if I'm remembering correctly. So the oddity is, we don't go to a lot of baseball games, like in person, like professional baseball games, because my son is usually playing baseball when baseball is being played, so you don't get that opportunity. And anyway, it very quickly became obvious that we did not win the lottery from the Phillies for tickets, you know, which are at ticket price at face value. And you start looking into the secondary market, and the tickets are just, they're ridiculous, like, you know, very cheap seat very, very cheap seats are $800, like $1,000. And you don't even get a seat, you get to stand in a sea of drunk people and watch the game, you know. And I went online, I thought, I wonder if I know anybody, like through the podcast or something that might know somebody says it does anybody? Would anybody be able to get tickets for this game that, you know, if they were interested in selling, I'd want to know about them. And the one thing you don't know is that a person contacted me privately and said, I have a friend whose father is a part owner in the Astros. And I might be able to get tickets. And we tried that that didn't work out because we asked so late. And other people would come online and say like I used to try here, actually, one person gave me an idea of of an app to use that ended up being less expensive. But what I didn't expect is that someone came on to the Facebook group and they're like, Hey, everybody, let's give Scott money to go to the World Series. And I'm like, now that gets weird carry because I have a job. You know what I mean? Like, and I'm not looking for people to like, I don't know, crowd fund me going to a baseball game with my son. And she, she had made this. It was Susie, she had made this like overture online. And I have to admit, I ignored her. Like I just I didn't want to like because no matter what I do, she's going to do it. Like if I go no, no, no, don't be silly. Please don't do that. She's gonna say no, you helped me or whatever. And I'm gonna do this. So I just kind of ignored her I felt bad. And then she emailed my moderator and said to Isabel, I want to put up a post to try to raise money for Scott to go to the World Series. And now I it's weird, because I'm you don't I mean, Carrie, like, I It's lovely. And that would be amazing. If somebody did that for you, but I don't need that. And there's part of me that doesn't want it. Do you know what I mean? Like, I don't want somebody to do that. So I told Isabel, you're gonna get a note. Ignore it. And, and she's like, Okay, I'm like, just don't respond to this. I feel bad. I'm like, just don't because it's gonna turn into people giving me money to go to a baseball game, and I'm uncomfortable with that. But then Susie just kept going and going online. And finally she put up a post and said, Hey, like, let's Scotland's go to the worlds here. You don't I mean, like, it's the weirdest, like, make a wish thing ever. I don't have any reason to be making a wish. And the next thing I know, there's like $1,300 in a pile. And I said to my son, I was like, Well, I now people gave me this money. I was like, i i I'd feel weird now not using it for what they wanted me to use it for. So we got up yesterday morning, found seats online, and I had a great time. Like, it was awesome. Really. It was amazing. It's the most intense sporting event I've ever been at.
Carrie 1:09:36
I brought my I brought my six year old to his first baseball my type one to his first baseball game. I took him to a Mets game over the summer. And I thought to myself like, Okay, this is gonna be hard. This can be hard to dos. He's gonna want everything. And it actually you know, it. It went really well. It was like one of those holes When miracles like the algorithm handled where, where I got it wrong, and I just kept giving insulin when I saw I'm starting to creep up, and it was actually like really empowering because you spend all this time counting the car, you know, when you're first diagnosed, counting the carbs and thinking about Pre-Bolus time and all the rest. And this was a night where we just sort of, alright, you want to chicken fingers in the fries, you want to chase it with that the ice cream cup that comes in the helmet like it is what it is.
Scott Benner 1:10:30
You probably felt the way I felt the first time in a movie theater that artists like I'm gonna get a slushy and yes, and cookie dough bites. I was like, I don't know if that's a good idea. But yeah, so I put your game face on. Yeah, we were no algorithms then. Like I remember us being in the lobby. And I was like, if you're gonna do that we're gonna Bolus right now. And I and my, my theory was bunch of insulin. And then we'll feed the insulin backwards, like so that's basically what we did. Like, we got her falling, and then you start hitting this IC and that thing, just boom, boom, that keeps trying to push you up. And I just kept using the IC as a parachute for the freefall from the insulin. And that I've you know, over over the years, I got better at it. But the first time that's what I did, I was like, I'm just gonna pour this insulin over your head, and then you start drinking the Coca Cola Slurpee that you just got. So anyway, Carrie, I really appreciate you doing this. I have to jump off because believe it or not, I'm recording another episode a half an hour. So
Carrie 1:11:32
I'm thanks so much for your time and for everything you've done for us. I really appreciate it.
Scott Benner 1:11:35
It's my pleasure. Did a lot for me today to like hearing you talk about stuff through the lens of the podcast was was uplifting to me. So I really appreciate that.
Carrie 1:11:45
Thanks, Scott. I really appreciate it. I'll talk to you soon.
Scott Benner 1:11:54
A huge thanks to Carrie for coming on the show and sharing her story with us. And I want to thank BetterHelp and remind you to go to betterhelp.com forward slash juice box to save 10% off your first month of therapy. So many of us spend so much time helping others. Once in a while you should help yourself betterhelp.com forward slash juicebox. A huge thank you to one of today's sponsors, G voc glucagon, find out more about Chivo Capo pen at G Vogue glucagon.com forward slash juicebox. you spell that GVOKEGLUC AG o n.com. Forward slash juicebox. Don't forget to check out the private Facebook group. It's completely free Juicebox Podcast type one diabetes. And if you're looking for all those episodes about on the pod five, there's a list right in the private Facebook group in the feature tab with all of them right there. I think you can also find them at juicebox podcast.com. Or go into your podcast app and search Omni pod five pro tip. They'll pop right up. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast.
Please support the sponsors
The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here. Recent donations were used to pay for podcast hosting fees. Thank you to all who have sent 5, 10 and 20 dollars!