Scott Benner 5/26/23 Scott Benner 5/26/23

#920 Best of Juicebox: Control IQ Ninja

First aired on Apr 12, 2022. Jeremy is a Tandem Control IQ ninja.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 00:00 Hello friends and welcome to episode 920 of the Juicebox Podcast today's best of is episode 660 to control IQ ninja. This episode is with Jeremy. He is the father of a child with type one diabetes and he possesses an amazing understanding of control IQ from tandem from April 12 2022. This is control IQ ninja. While you're listening please remember that nothing you hear on the Juicebox Podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin Juicebox Podcast listeners use the offer code juice box at checkout at cozy earth.com to save 35% off your entire order of clothing, bedding, towels wherever you can find it cozy earth.com You'll save 35% With juicebox at checkout. If you're looking for community around type one you want to talk about tandem control like you or anything else. Find my private Facebook group Juicebox Podcast type one diabetes on Facebook 40,000 members, type one type two parents adults beautiful mix don't care what you eat don't care how you live. You're welcome there. The podcast is sponsored today by better help better help is the world's largest therapy service and is 100% online. With better help, you can tap into a network of over 25,000 licensed and experienced therapists who can help you with a wide range of issues better help.com forward slash juicebox. To get started, you just answer a few questions about your needs and preferences in therapy. That way BetterHelp can match you with the right therapist from their network. And when you use my link, you'll save 10% On your first month of therapy. You can message your therapist at any time and schedule live sessions when it's convenient for you. Talk to them however you feel comfortable text chat phone or video call. If your therapist isn't the right fit for any reason at all. You can switch to a new therapist at no additional charge. And the best part for me is that with better help you get the same professionalism and quality you expect from in office therapy. But with a therapist who is custom picked for you, and you're gonna get more scheduling flexibility, and a more affordable price betterhelp.com forward slash juicebox that's better help h e l p.com. Forward slash juicebox save 10% On your first month of therapy. The podcast is also sponsored by touched by type one touched by type one is a beautiful organization helping people with type one diabetes, and they just want you to check them out touched by type wine.org on Facebook and Instagram. They have a big event coming up in a couple of months that I'm going to be speaking at touched by type one dotwork Hello friends and welcome to episode 662 of the Juicebox Podcast. Today we're going to speak with Jeremy who is a past guest on the show. Today's topic is much different than his first topic. We'll cover that later in the podcast. But today Jeremy's gonna tell you about how he manages his son's type one diabetes with tandems control IQ. And let me tell you something, Jeremy is a next level guy. He's a bit of a ninja. He took what he learned on this podcast and just kept learning about control IQ and today he's going to tell you all about how he does it. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. After the show today, if you'd head over to t one D exchange.org. Forward slash juice box and fill out the survey. I would appreciate it you need to be a US resident who has type one diabetes, or is the caregiver of someone with type one. It only takes a few minutes T one D exchange.org. Forward slash juicebox Well, episode were you on the first time?

Jeremy 04:44 Um, it was the after dark divorce episode.

Scott Benner 04:48 Yeah, we didn't really talk about like, yeah, okay, so go ahead and reintroduce yourself.

Jeremy 04:54 Okay, I'm Jeremy Ross Meyer. I'm a single dad of a type one diabetic. And then Damon is 13 years old. And we have been diagnosed for four years and our agency has been between 5.3 and 5.8 for over three and a half years.

Scott Benner 05:18 And in these three and a half years, have you always been using control IQ or if it hasn't been different matters?

Jeremy 05:23 No, we've done all three, we've done straight pumping with tandem we've done Basal IQ, pumping, and control, IQ, pumping, all maintaining that same a one C spread very nice. Okay. I mean, sometimes I feel like I was blessed to be able to straight pump because you really, really understand what adjustments do to blood sugar. But it you can start anywhere. Really,

Scott Benner 05:53 yeah, you could figure it out with needles, you could figure it out with pens, you can figure it out with a pump like it's all just watching the insulin go in and seeing what it does. It's I mean, it's great, obviously to be able to adjust your basil on the fly and not have to wait 24 hours to inject again to try to make an improvement or change. Just real quick for people. That episode that Jeremy was on before 508 After Dark adult child of divorce you actually came on that one because you started out. Let me see if I can remember this. Jeremy, this will be interesting. You weren't Oh, no, I

Jeremy 06:28 don't know if it is that when because you said adults.

Scott Benner 06:30 Oh, I thought the wrong one. Excuse me. Cheese 372 After Dark divorce and co parenting.

Jeremy 06:38 There you go start one.

Scott Benner 06:39 I'm starting to pot. Actually. There's a lot of them here. I have one too. I searched divorce in my episodes and came back with four. No, no kidding. All right, yours is 372. About co parenting because if I'm remembering correctly, you're divorced as your child is diagnosed. And and we all get along, right? And you guys actually get along, right? And that's what you're talking about. Right? I did get a lot of impact. Impactful letters back from people where they're like, can you just interview somebody who's not getting along and how they're doing it? Yeah. And I said, Good luck getting somebody who's not getting along with their ex to come on a podcast and talk about it. I was like, people are not generally excited to divulge that kind of stuff. But I have gotten a little closer in a recent episode 625 was about divorce and disagreement. And that person? Yes.

Jeremy 07:33 And it was an excellent, excellent representation of the other side.

Scott Benner 07:38 Yeah, yeah. So I finally got there. It's not I'm just saying not easy to get somebody to come on and talk about their spouse or their ex spouse. Yeah. Especially if they're not getting along very well. Alright. So Jeremy, you are back today? Because? Well, I know you. And I know you, especially through the Facebook page. But through our previous conversations, and we text sometimes, and you are very good at using control IQ. And, you know, I've had somebody on recently to talk about it. And we I thought had a pretty surface conversation about it. And I didn't know enough about control IQ to push back in certain places. So you're sort of on here to help me dig deeper. Sure, yeah. So I mean, kind of take it away. Tell me what you what you would tell somebody else if I said, Hey, should I should I try control IQ? What would you say?

Jeremy 08:28 So just to kind of give you an idea here, I also am, this is not an invitation to contact me and ask. I also can follow three other children up here in Montana that are on control IQ, I also control their pumps, they're a onesies are all below seven as well. So I've kind of done this long enough with enough samples to understand what needs to be done with control IQ to get it to work. Not just on my child, but on different age children on male females in puberty out of puberty. But what it really comes down to is that before we even get into control IQ, there's a few things that in my opinion, it doesn't matter what pump you're on, that needs to be better understood or mentioned. Before we get into control IQ. Stuff like consistency, how you treat Lowe's, what you treat Lowe's with using protein at night, and just allowing basil to do its job. The way that we treat like between my son and I is we either use Mott's apple juice, that's the all natural stuff, or we use gummies we know how much apple juice to drink to get to three carbs, we know how much to drink to eight carbs, and it's consistent. And it works the same way every single time. And you're going to hear the consistency through the control IQ point of view as well. We know that what a gummy will do to his blood sugar. We know that when he's dropping this hard, he needs this many gummies. The longer that you stick with the same sort of thing, the better results you're going to have, instead of just throwing Oreos that your child then like,

Scott Benner 10:36 let me let me make sure because I I know what you're saying. But I want to make sure we're all clear. Sure, there are impacts variables all over diabetes, including the things you don't think of as being impactful. And the idea of you're getting low. Oh, what do I do? Doing something consistent, breeds a consistent response. And more and more importantly, allows you to move forward without crazy highs or crazy lows or things that you don't expect to happen. So if you're consistent with how you bump your your low blood sugars, then you'll be consistent with what happens afterwards. Not just like, hey, this time eat an Oreo next time have a piece of chocolate cake this time. Yeah, cuz soda, like that kind of thing. Treat the Yes.

Jeremy 11:20 There's always times dt, the whole fridge. Yeah, right. You know, there's always those extremely high delta where they're about to pass out and you just grab anything and everything and throw it down their throat doesn't happen often. If it is happening, often there's something wrong. But moving moving on from that, we have to kind of talk about what I call garbage in garbage out. Which means that you know, you need to be checking your Dexcom ratings, not just doing nothing about them. That starts with a good glucometer. And I this is not an ad for

Scott Benner 12:04 you want me to do the ad Jeremy. The Contour Next One blood glucose meter. Are you about to say that? Are you about to say it's a great meter,

Jeremy 12:10 I just couldn't remember what the hell it was called. But one thing but anyways, in the thing that we've tried different, there are tons of third party studies out there that shows that that Contour Next One is the most accurate meter on the market period. Now I understand there are some people that you know, can't afford, you know, something like that, because the strips are fairly expensive. But they're, there's so many times that that meter will exactly match Dexcom it's not even funny. Yeah, I agree. Then there's certain things about Dexcom. Like you need I hear I hear a lot of people say, Oh, well, we never calibrate. We're a family that calibrates with my son. If you do not calibrate, the second it comes on, it will dump Low to low, and it will die. You have to calibrate my son immediately when it comes on. And then you're good for the first two days. You have to calibrate on the third then we have to calibrate on the eighth every other fingerstick that we do every single morning this this consistency. And every single night before he goes to bed is normally within five points.

Scott Benner 13:30 But you still do it you still do it every time.

Jeremy 13:33 You still do it every single time. Yeah, you have to the center will die. We've we've heard you know Kevin Sayer Come on, and say that it's just it doesn't work the same way for everybody. We just figured out what works for us. And with a very accurate Dexcom rating from a very, you know, accurate glucometer you can stop the garbage in garbage out. And what I mean by that is only testing the blood sugar and checking Dexcom whenever the side arrows sideways and making sure you understand how the Dexcom works.

Scott Benner 14:17 So that the numbers you're working with are good or accurate so that you can end up making good decisions with Ardennes interesting artists decks, either works, boom, or it's needs to be calibrated on the first day. Yeah, one of the other. I don't, I don't I haven't seen a rhyme or reason to it. I would tell you the last six of them we've put on I haven't had to do that. And then before that a couple of them need lit people's body chemistry is different. There's all kinds of different things going on. But your your your specific point is so incredibly important and valid which is you are making decisions, measuring a medication based on a number and you might be getting that number with a meter that's not accurate. or to CGM that's not accurate. And then you're making decisions and, and running forward. I love that you test twice a day.

Jeremy 15:07 But here's the bigger picture. Scott. Yeah, you keep saying that I'm making decisions. Now putting algorithms and control, right? You have bad Dexcom readings, you it's 100 points higher. And it's dumping more insulin than it should. Garbage in, garbage out, you have garbage information going into the algorithm, you're gonna get garbage out. So it is very vitally important to make sure that you have a Dexcom rating that is reliable. Yeah, this is this is this is all algorithms. This is Omnipod. Five, this is control IQ. This is going to be control IQ. 2.0. Whatever else comes out from Medtronic, you know, everything is based off of that blood sugar reading. And if it's not accurate, how can you expect your results to be accurate? They can't,

Scott Benner 16:02 and you have to take some responsibility for that yourself.

Jeremy 16:05 Yes, yeah, absolutely. Yeah, there's, um,

Scott Benner 16:08 can I think a tiny like, brief little sidebar here on the Sure. I'm forever interested when longtime type ones come on, and they'll say things like, I didn't want to get a CGM until there was no calibration needed. Because it's always the inference is always that it's such an inconvenience, like, why would I take on this new thing, if it still needed my effort? And I think that's an old timey way of thinking about it. You know, I think that I mean, a CGM for my daughter is first, right? Like seriously, if the house was burning down and I could grab a pump or a CGM on the way out the door. CGM, right. Not to say that it's a one of the other decision. I'm also of course, a huge fan of the pump. But But my point is that is that the idea that if it's not completely nothing, I have to touch ever or nothing, I have to think about that. I don't want to do it. I don't understand. You know, like, this is just, this is where we're at with this technology. And, you know, using Dexcom G sixes, as an example, you know, they tell you, you don't need to calibrate, that means they got it through the FDA, and you're gonna be okay. If you don't calibrate, but you that might be that one day, the thing thinks you're 130. And you're, I don't know, 150? Or you're exactly your ad and it says you're one I don't know, like it might not.

Jeremy 17:33 Here's the thing, though, Scott, is that if you want better than average control, right, you need to have better than average information going in effort. And in order to get that better than average information going in, you have to calibrate. You hear people all the time saying, oh, Dexcom is 15 minutes behind, not if your line is straight. Not it? That's only whenever it's falling or rising. If it's if you're primarily straight, and I know and I will get into this later, that I'm not saying my son is straight all day long. He is not he is just like Arden. He has trips to 180 Maybe once a day, and he comes back down. I am not one of those people that that craves a absolutely straight line. I do not go nuts. I just don't allow it to get nutty. In the long run. Yeah.

Scott Benner 18:32 But your point is, is that when you're in the middle of stability, and your the blood sugar is 96 and it's been 96 for the better part of three hours. If you're there's a way to be certain that that's true. And by checking checking with a finger stick and then telling Yes. And then calibrating sometimes,

Jeremy 18:50 and that's first thing in the morning when they first wake up. Okay, that's how it's working last a water. Check your blood. He knows every morning glass of water, check your blood. Water gets blood moving, and he doesn't have anything impacting his blood sugar. Dexcom should be pretty straight on.

Scott Benner 19:07 Yeah. And it is normally. Oh, yeah, yeah. Okay. Yeah, it's

Jeremy 19:12 like within five point if it's within five, we don't touch it. If it's within 10 Like if it's 10 or more, we're calibrating and that's both. That's way sorry for the swearing. That's that's just it's not acceptable. And I know that may sound extreme, but it's not. It really isn't

Scott Benner 19:32 from your from your experience. What's my question here? This is just proving out to you over and over again. Yes, but it is not wait Dexcom would tell you to do is that correct?

Jeremy 19:44 Absolutely not. Okay. I'm just like, you know, dumping more insulin on your kids 30 minutes after he just ate is not what an endo would tell you to do. So I guess moving On more to like the pump, the next thing that you kind of have to remember is that you have to understand the pump that you're on. Doesn't matter which pump it is you have to understand how it works, especially if there's an algorithm involved. Control IQ is not a miracle machine, like a lot of people think. Adjustments still have to be close and made and sometimes made often. But you start looking at the tandem, and I don't want to start sounding like a tandem shill, but I am. The big things with tandem is that you can adjust basil in point 001 increments after point one, like Omnipod, or Medtronic can do point 05. That's a 50 times increase in adjustability. And we all know how much Basil is how in basil, how important Basil is something that a lot of people don't know is that the on a tandem? The carb ratio, if it's under 10. You can adjust it by point one instead of one. Yeah, if you have eight isn't working. And nine is too strong. You can do 8.1 8.2 8.3 8.4 A point but you can do by point one to dial in that carb ratio. Okay. Once again, this comes back to consistency. You need it. You can't just flop on either. Or if nines too strong. You can't say Oh, well, I'll just, you know turn their basil down for a half an hour. No, get it right. I mean, let's be honest, our kids normally eat the same thing every morning at breakfast. I try to offer him a million different things, but it's always pancakes with chocolate chips, strawberries, and milk. Wow. Every single morning. A lot of cooking. Well, we always get those frozen. Okay, okay. So pancakes.

Scott Benner 22:09 Oh, I got in your mind Jeremy. You're whipping up pancake batter and cutting up strawberries? And no. So so back to that other point. You're saying that, like for instance, Arden's carb ratio is one to four and a half, but it could end up being one to 4.7 instead, yes. Right. And you have and

Jeremy 22:28 it will, it will allow the tandem will allow you to make those 10th adjustments if the carb ratio is under 10. And you may think, Oh, well, you know, that's just being too picky. Well, no, like, whenever carb ratios get below 10, they get crazy. You know, my son is 13. He, according to his Endo, I don't really understand it. There's four stages of puberty. And he's in stage three, and he's peaking right now. And he doesn't understand how he's still less than 1%. Low. And it's, you know, he doesn't understand how he's 5.6. And he doesn't understand a lot. But, you know, the proper pump adjustment is one thing, you know,

Scott Benner 23:14 yeah. So these, all these little things put together. Are the assets are the answer to stability, right? It's the Yes, making sure that the data you're working off of is sound. It's not just randomly picking an amount of insulin, but actually being able to dial it in very closely. Yes. And it's consistency with how you are addressing low blood sugars. Its consistency with drinking that glass of water in the morning, before you test your sugar. Like all those little things, do you find them to be overwhelming? Or do they just happen? Pretty?

Jeremy 23:48 No, they have they seem a little at first, and I've had a few parents tell me Well, that seems like a lot. I'm like, No, it doesn't real after about, you know, a week, you'll be like, Oh, this makes sense. And the families that I do help, you know, and that they do get this way, you'll see like a huge improvement. They go Oh, I get it now. Okay, because you'll start seeing those improvements. You know, it's not just in the pump, or the algorithm. It's how you're treating everything else.

Scott Benner 24:19 So when you hear when you hear me say that more effort upfront, saves you a ton on the back end. That's how Yeah, yeah.

Jeremy 24:27 Yes. And but the thing is, is it doesn't become a lot of front, other than the first couple of weeks while you're getting used to once you get it. You're not being strict. You're not forcing you know, I'm lucky as hell that my son loves apple juice and he's never become bored of it. I asked him like every other month or so. Hey, do you want to try something else other than apple juice? Yeah, he goes, nope, I'm good. Yeah, but, you know, boys,

Scott Benner 24:53 etc. Sometimes Tell me if this sounds familiar, you're all set up with a diabetes supplier. And they've told you don't worry, we're gonna send you your supplies on time, you're never gonna have to call us again, this is going to be easy. And then one day, your stuff doesn't show up. You run out of your Dexcom supplies, your libre supplies, your insulin pumps, and the new ones aren't there the way they're supposed to be. So you call them up on the phone? And what do you say? Well, I don't know what you say. But here's what I say when it happens to me say you guys told me this wasn't going to be a problem. They say is this always happens at the end of the year? Well, we needed a new prescription. And we reached out to your doctor, but they didn't get back to us. Then there's this long pause. Like it's not their fault. The people who told you they were going to take care of this are now foisting the blame onto someone else. What does that mean that they reached out to your doctor? I don't know. Does that mean they send them a fax? They call them on the phone? They send up smoke signals? I couldn't begin to tell you what my old suppliers did. What I can tell you is what US med does. It's simple. They get it done. There's no Nunna boom. Not supposed to curse stone. Yeah, it's but you hear what I'm saying? You asked med tells you they're going to take care of it. They're going to get a script from your doctor, then they get a script from your doctor. That's simple. US med takes over 800 private insurances. They accept Medicare nationwide. And they always provide 90 days worth of supplies with fast and free shipping. carry everything from insulin pumps to testing supplies, CGM, they have what you need, all you have to do is go get your benefits check at us. med.com, forward slash juicebox. If you don't like the internet, you could also call 888-721-1514. Well, now we know where you're going to get your blood glucose meter at. But now we need to decide which one are you going to buy. If you asked me, I'm gonna say the one that my daughter uses the Contour Next One blood glucose meter. I have no copy in front of me, I'm not looking at a website, let me just tell you why I would pick that meter. First thing that pops in my mind. It's easy to hold easy to carry, easy to put in a bag, or a pair of pants, or wherever you carry your stuff. And I mean, like a pocket. It's small, but not too small. It's easy to read has a bright screen and a bright light for nighttime viewing. The test strips allow Second Chance testing, here's what that simply means. Should you touch the blood but not good enough, you can go back and get more without interfering with the quality of the test result. And that is not to say that it needs a lot of blood, it actually doesn't need very much at all. The sample size I find to be very small. This is in fact the easiest to use, handiest and most importantly, most accurate blood glucose meter that my daughter has ever used, that I have ever used, that I have ever been in the same room with the Contour Next One blood glucose meter, go find out more about it. At contour next one.com forward slash juicebox. When you get there, you're going to see a very informative website, and easy ways to get yourself a great meter. It's actually possible that the meter and test strips could be cheaper in cash than you're paying right now through your insurance for your current meter. And there's very little chance that that meter is as accurate as the Contour Next One, there's only one thing left for you to do. Go to our browser type contour next one.com forward slash juicebox. You will also find links in the show notes of the podcast player you're using and at juicebox podcast.com. And by the way, if you're listening in an audio after this podcast, please hit subscribe or follow. Alright that's it for the ads. Let's get back to Jeremy he has a lot more to share about how he uses control IQ.

Jeremy 29:08 The biggest thing is like we're talking and once again about pump adjustment is you'll hear often people will tell you to adjust Basal by 10%. That seems to be a pretty standard adjustment. But I always tell people not to and here's why. Let's say your kid is point seven five an hour and you add 10% to that. The math to that is it will end up equaling out point eight to five I believe and that will be a difference of point 075 You're adding point 075 When adding 10% 2.75 So then they're at eight to five, which tandem doesn't have a problem doing it can go out to that Also remember, so eight point or sorry, point eight to five plus 10%, they need more, another basil increased, you're now at point 907. And that's a difference of points 082. So you've went from an increase at seven, five of point 075. And you've now increased Basal again by point eight, two, or point zero, a two. Then from 907, you add 10%, you get point 997. Now you're adding point 09. It's not consistent. Every single time, whenever I first started out, I, the best thing like the CD could have told me is every single time or she kind of showed me on an AGP report. And I'll kind of talk about that a little bit later. But every time you see a change here, I want you to just change the pump by point zero to five. That was my quote, baby step. That's what she called the baby step. But it consists and then okay, but it's consistent point zero to five, because you will know what point zero to five does. If it keeps increasing, because you're going by 10%, there's no consistency there, you're adding more and more and more or taking away less than less. Currently, point 025 is a huge jump for us. Once you get basil dialed in enough, I literally move my son's basil by five 1000s of a unit of basil per hour. I know exactly what that does. And it's normally nine out of 10 times enough to get him perfectly back in life. Wow. If you take our Dexcom, 90 day AGP report it is a straight line with very little variation. And it's all because of the consistency it's knowing what that point 005 Or a point 01 change in Basal will do and keeping it consistent.

Scott Benner 32:11 How often do you think you change this base or it

Jeremy 32:15 um, so I changed them two days ago, before that I had not touched them in a month and a half to two months, even in full bore puberty. And he's still his average blood sugar is still down there very low one hundreds. And as best he is in the mid 20s. That's excellent. And I wasn't able to I once you get dialed in and you fully understand how to keep things consistent. things stay consistent. Now I understand there are people in honeymoon that does not apply to you. There are people that you know, have sports does not apply to you while my son is active. That's it. A lot of it's about knowing how to treat before sports before jumping on the trampoline before doing all this other stuff. He knows like before PE because he's moved into independent at school. He knows before PE he goes and ask the teacher Hey, what are we doing today? And if it's something like we're playing dodgeball, or we're running the mile he knows to grab, you know, something out of his bag, and get some carbs move it. And that's just more consistency. But let's you want to get into control IQ. Yeah. And actually,

Scott Benner 33:34 no, I appreciate your overview of how you think about it, though. Yeah, I mean, really, that's very helpful to me. Because I mean, you'll admit, I would imagine, maybe you won't, but you listen to the podcast. So you're thinking at this. I think you're taking, like, things that I talked about, and you're being more granular with them much more so than I ever am. Yeah, and and you're fine tuning things down even farther, like you're, you keep tightening that that wrench until it's exactly where you want it to be. It's It's amazing. I mean,

Jeremy 34:08 but the thing is, like I said, is that once you get there, you don't have to do much work once it's about learning the patterns and staying consistent, right? And looking at the ADP report at least once a week and saying, Oh, look at that. I might want to scooch that up a little bit. Instead of just oh my god, what's going on? It's like, one day, it's just random. If it happens two days for me there needs to be a change. If the third day it's still not right you're gonna get changed again. You know, something's gonna change you don't my

Scott Benner 34:43 bigger takeaway from this is that wherever you are. You're not too far. Why do I how do I say this? Hold on. Let me think Jeremy. If your management style keeps you at a 200 blood sugar and suddenly your blood sugar tries to jump to an average to 10 blood sugar, you don't have to manage much to get back to 200. If your average management keeps you at 150, or 120, or 110, or at whatever your management style is, once you're there, and you can accomplish it, even when other variables come in and try to move you off of your success, the adjustments to come back to where your norm is, or not these great, crazy things that need to be done. Is that the thing you're telling me? Yes, okay. All right. I agree. Okay. So,

Jeremy 35:33 yeah. Let's talk about algorithms, and how, how at least control IQ works. Because I often see in post, people saying, way, way wrong things. And I often want to correct them, but I often come off as a jerk. And oftentimes, Scott has to get on there and say, Oh, well, Jeremy is a really good guy.

Scott Benner 35:58 Boys are not well, sometimes boys are not good at communicating and writing

Jeremy 36:02 No, no, no, absolutely not. So the first thing that you need to know about control IQ, is there's three different modes, there's normal mode, there's exercise mode, and then there's sleep mode. We do not we're not sleeping beauty, we do not use sleep mode, 24 hours a day, there's a lot of people that swear by it, but my endo would come unglued. And I'm just not going to deal with it. Our results are fine, we don't have to go there. So in normal mode, this is where control IQ is at 90% of the day, if you're using control IQ as it should be. I'm not saying it's the right way, because there's many ways to skin a cat. So in normal mode, control IQ will target 112.5. I know that's a weird number, but it is a real number. However, we'll adjust the Basal based on predicted blood glucose levels. 30 minutes out that six readings. Now, if you're maintaining between 112.5 and 160, it will deliver the settings that you yourself or your Mo has put into your pump, nothing changes, it's not doing anything but running off the settings inside your pump. Now, control IQ will increase Basal insulin. If the sensor glucose value is predicted to be above 160. In the next 30 minutes. Once again, that six ratings it looks it says okay, they're moving by plus five the deltas moving by plus five every five minutes. If I apply that six readings out, are they going to be above 160? Yes or No? If yes, it's going to start increasing the Basal. Now control IQ will decrease Basal insulin delivery. If the sensor glucose is predicted to be below 112.5. In the next 30 minutes. Once again, six readings out if you're 180 and you start dumping by 20s It's going to start you know cutting insulin control IQ will stop all Basal insulin delivery if the sensor glucose level is predicted to be below 70 In the next 30 minutes. So if you're dropping hard, and if it depending on how fast you're moving, if it thinks that you're going to be below 70 In the next 30 minutes, it will cut all insulin. Oftentimes, you have to you have to understand that when setting your Basal that while it's important with control IQ, insulin sensitivity factor is just as important as Basal if not more important than Basal with control IQ. Okay, because the pump uses the ISF or the insulin correction ratio or the correction factor. However you want to say it to determine how much insulin to increase or decrease when making its modulation to the Basal. So what I like to tell people is to think of it as an aggressiveness knob. If you're seeing big cycling, which means the start to go high and then the you start to go low and you're kind of riding a wave all night long. What that means is that you've actually got two wrongs, which looks like a right. While it's fairly steady, you're cycling and what will happen. This happens I know with loop a little bit too. Not sure if Omnipod five yet, but what happens is if you get the Basal a little loose, you'll start drifting up, then control IQ will say, Oh, they're drifting up, we need to add more insulin, then the ISF is a bit too stiff, and it will start sending you a low and you will cut insulin, and then you're stuck in it. And then you'll start going high because of the kind of insulin and then you'll go low because you end up cycling, bouncing. Yeah, so what looks normal, might be two wrongs look like a right. So and that's the biggest complaint is that Basal IQ cuts them slim, then they go high. And then they overcorrect. And they go low, right. So your pumps already trying to handle it. And you're not allowing it to because of your settings.

Scott Benner 40:47 Are you saying that this becomes obvious when you see basically the settings fighting with each other? There, there's,

Jeremy 40:54 they're not fighting each other. They're just wrong. They're wrong, but they're not fighting each other. It's just the algorithm responding the way that it was designed to respond.

Scott Benner 41:06 And using those headings, it makes you it makes you a little too low, it cuts itself off, which makes you too high, it gets aggressive again, which makes you low. And you're saying that if these two settings were more in line with what you actually needed, there'd be this stability where there'd be some insulin, but you wouldn't be taking it away and then adding extra and taking away and adding extra time. Yes. Okay. And that process of take even though the algorithm can keep up with the problem, mostly taking away giving back taking away giving back, that is not your goal.

Jeremy 41:38 No, absolutely not. Okay. So we kind of went over what normal mode looks like exercise mode, in my opinion, my opinion, is completely worthless, unless you're thinking two hours ahead, and what 13 year old looks two hours ahead. The way it works is instead of targeting that 112.5, it will target 150 instead, it will still deliver correction doses, if you're predicted to be above 180. In the next 30 minutes, it will still increase Basal if predicts by the blood glucose to be above 160 In the next 30 minutes. It will decrease insulin even if it predicts the BG lower than 160. In the next 30 minutes, it will suspend. If it predicts your blood glucose will be lower than 80 in the next 30 minutes instead of 70. Like in normal mode. So if you know that you're gonna go on a bike ride in two hours, then yes, you can turn on exercise mode, and it will protect you and it's great. If you're running a marathon, you know, an hour and a half, two hours away to turn it on. It works great. But for a lot of parents, they say oh, it doesn't work. And that's because they turn it on right before their kid gets on the trampoline, and then wonders why Johnny goes low on the trampoline. It's not great for those kids, you know, and those families that are a lot more spontaneous. And you know, I don't know about a lot of people, but like, my kid has a full sized trampoline in the backyard, next to a huge 16 foot pool. And yes, he uses them together all summer long.

Scott Benner 43:22 Well, I think that it's funny, because while you're talking about this, I'm relating it to loop in my head. Yeah. And what I'm thinking is that when I see when I look at overnight, what I want to see is that Arden's Basal insulin is not being cut away constantly. And that there's no correction that correction bonuses aren't happening all the time. And I do want to say that things happen, and you want the algorithm to work. But generally speaking away from impacts, like you know, boluses food, you know, hormones, like it just that normal time, which God knows Jeremy, how often do the normal times happen, but in those normal times, you want your settings to just work there where they are, and the result is low and stable. Yes, yeah. And that low low, like normal and stable.

Jeremy 44:17 Yes. And then that moves us into that sleep mode that everybody raves about. So, really quick sleep mode will target a very tight range of 112 and a half to 120. While it's fun, but not deliver any correction doses whatsoever. It will however, be much more aggressive with increasing and decreasing the Basal once again that's where the insulin sensitivity factor comes into great play. You have to have ISF dialed in immaculately overnight, along with Basal but Thaman normally He gets down in that. Oh, 85 to 95 range all night long. From one week after starting control IQ I slept every single night. I maybe have one or two nights a month where he has the compression low, and an alarm goes off. Other than that, if it wasn't for my sleep apnea, I would sleep all through the night.

Scott Benner 45:28 85 to 95. Yeah, yeah. And you're doing that not in sleep mode?

Jeremy 45:34 No, we're doing that in sleep. Right? Excuse me, we're just not in sleep mode. 24/7, like a lot of people do. There's, there's a lot of people that that their life is very dense normally on older type ones, or type ones that have the very, very strange, strange, stringent routine every single day where everything's the same. We eat the same breakfast, lunch and dinner, we exercise at the same point in time, every single day, there's not a lot of variation, you're able to turn that 20 That that sleep mode on 24/7. And if you're these people that have those settings, set up just perfectly, there is no reason for control IQ to dump a 60% correction. Right? They do that themselves. They're already so in tune with themselves. Because they've been doing this for so long. That they're making no they don't believe that.

Scott Benner 46:33 Yeah, they're making they're making great Bolus is around food. They're not fast letting a lot to begin with.

Jeremy 46:38 Exactly. And so they they benefit from Sleep mode being more aggressive. And you know, when they're when they're awake, because they're they're not running away. You know, running 100 yard dash when like a 13 year old, sees a girl from half a block away.

Scott Benner 46:58 Yeah. Right. Or going from the trampoline to the pole back of the trampoline or something like

Jeremy 47:03 that. Yes, exactly. I say. From there, it's it's a lot of it is understanding Dexcom reports. And we're talking about clarity, if you don't have clarity downloaded on your phone, sign into it. There's tons of different reports. And yes, they look intimidating at first. Needless to say, the only thing that matters to me on on Dexcom clarity is that AGP report, it's the very last one, it shows you your average blood sugar at a given time throughout the whole day, then it has a blue bubble around it that shows basically, without getting horrifically nerdy shows you how variable you've been around that average blood sugar. And then from there, it's using those reports to make smart, educated, experienced decisions in a very consistent manner. To get better than average results. You look at the age gap report. And if you start seeing like on a seven day average, you keep raising every single day at 3:20pm. About an hour and a half before that will kick up. You should probably have a Basal segment there. It's about a lot of people will argue over two or three or one Basal segments in a pump. Yeah, my son has nine. Wow. And the reason that he has nine is because that's what he needs. And you look at a GDP report, like I said, I can pull up a 30 day graph and it's straight as can be. And the blue line is very, very close to that red, that red line in the middle. It's I don't want to say it's not rocket science. It's all with time and experience. And staying very consistent and understanding what each thing that you're adding is going to do.

Scott Benner 49:22 I'm pulling up Arden's AGP report right now so that I can ask you a question about it. Because what you said was to make you know, you talked about making smart decisions about changes but who tells you what those changes are like, what what about the report says something to you and says, you know, go ahead and you know, this means do a thing. You know what I mean? Like, like so I have Arden's last. It's interesting, right? I just, it just popped up her last two days. And she's not she doesn't have any hormonal impact and the last two days are much less. Her standard deviation cuts in half. If, when that happens, yeah, very, very interesting. It's it can go, it can be as high as 40. At times, with still an average blood sugar of 110 to 114. Yep, yep. And then as soon as the birth control pill she's on goes to placebo, her deviation goes into the low 20s. Yeah, right away. And that's just,

Jeremy 50:24 and I dealt with one other young, young, younger female, she was 13, that it was the same way. It just depending on what type of month it was, and we made those adjustments, and we made a different, you know, deal in the in the pump to deal with that time of the month. And we figured out okay, every month, she needs this much more three days before she's really regular. Let's, you know, treat this the way it should be treated, we know that she's regular, let's be brave. And let's start increasing that insulin the day before, we know we need it. But go ahead and go back to the GP reports.

Scott Benner 51:07 Let's talk about well, I got my glasses, but I'm, it's hard to put them on the console. I just got old out of nowhere a couple years ago. So I went back and I went to 30 days now. So the last 30 days, the last three weeks Arden has been trying. So I think everybody who listens knows like we're trying to regulate Ardens period with the birth control pill, it isn't going so great. But so I have her average glucose is 122. Over the last 30 days, she has been very low 1.4% of the time, which means under 54, low 6.4% of the time, which means 70 under 70. I don't particularly consider that low, but that's okay. In target. And the target, of course is you know, 70 to 180. For the report, I have AD Yes 83.4% of the time high over 180 10% of the time and very high point 3% of the time. Her coefficient of variation was 33 over the last month and like I said her standard deviation is 40. When you when you get all that involved now, in truth, I don't know I haven't looked back. I don't look at clarity as much as I should to be perfectly honest. So so when I look at this line that I'm seeing, it appears to be incredibly stable. Right around 100 110. For this last 30 days, I see a little bit of an uptick around 2pm that lasts until about six or so. So if she does get higher, she can go 130 or so in that timeframe. And when I do see the 180s it's in that exact timeframe, four o'clock, four o'clock, eight o'clock. Anyway, I don't know, what do I do with this?

Jeremy 52:54 So I focus on the red line in the middle, okay. And I kind of make sure that I understand that where meals are and that there is going to be a spike. But in that 30 Day graph lease, I normally make adjustments on the seventh day or the 14th. But the 30 tells a lot. It tells how long have you had this problem. And if and if you see on the 30 day graph, a slight uptick because I'm pretty I've seen AGP reports and I'm like holy hell, and it takes a good month to straighten that red line out like rubber bands. That doesn't mean that they're like that every single day. That just means that your average that's where your average is I don't care about day to day. Yeah, the median I care about the average over time because this is a marathon, not a race. And so if I saw on the 30 day graph, a slight increase at 2pm I would look at my son's pump, and I would say okay, that basil at 1230 Keeping in mind that his lunches that 1130 At school, I know it's not lunch, that's the basil issue to me. And I would literally go to 1230 an hour and a half before two and I found that all but one of the kids that I've helped her one of the families that I've helped every single last one of them it's been an hour and a half before the before the event on AGP. So I would go to 1230 and I would literally bump him if it's just a slight one I would literally bumped him five 1000s on his Basal, okay. And it will be at two o'clock it will hit and point 005 isn't enough to to drive them low. And then the next day if you look at it, you're like, Okay, it's still there. But if I did another point 005 It would be done. You know, and that's where I go. I don't get so granular that I go by the 1000s but I do go by the 5000s or the point one because I can look at a line and be like okay, that happened yesterday too. And at that angle or that Delta, the change in in blood sugar reading that that angle is going to need a point one instead of a point 005 It you know, you'll you'll get used to it, you'll you'll look at a line you'll be like, Okay, that's happened three days now. That's that's going to be a point one instead of a point 005. That's because you're staying consistent. And you know what point 005 does, or you know what point one does?

Scott Benner 55:32 Well, so that's

Jeremy 55:33 point 01. Sorry,

Scott Benner 55:34 now, so when I'm looking at this, looking at Arden's also, the other thing we're doing is it Arden is we're onboarding more and more responsibility to Arden as it gets closer to her leaving for college, a little bit of her practicing. And I think this is her doing a not great job of Pre-Bolus thing as much as she should for her launch.

Jeremy 55:54 So blow your mind. We don't Pre-Bolus at all,

Scott Benner 55:59 ever anymore. Because everything's so tight for you. Yes, and it doesn't matter.

Jeremy 56:06 It does not matter. Because the other thing that people don't think about is lots of people do. I'm not saying everybody but a lot of the things that people don't understand is they'll show me a chart. And they'll say, Well, I dosed correctly for this meal. And look, there's still 250 At the end of the day. But if you look at the line when they dosed, they were already climbing. And the thing is, is whenever you Bolus with any pump on the market, any pump on the market, whenever you Bolus for a meal, the pump assumes a straight line. If you hit Bolus, Ada carbs and hit enter. It's going to assume it tandem will automatically pull your Dexcom reading into that calculator. And let's say it was 150 it will assume that your blood sugar is 150. And completely steady. It does not take in and this this goes for Omnipod. This goes for everything. It assumes a straight line. So if you are 150, and you're an arrow up, it's going to under Bolus you. If you are 150 arrow down, you it's going to over Bolus you. So that comes back to like if you look at the meal and you you're having ADA carbs, your 150 and your let's say arrow diagonal up. And you're looking at the Delta and you're like Okay, so the delta is moving about point six right now. You have to think 30 minutes ahead. So okay, so 30 minutes ahead. At 630. That's six readings time, that's 30 points more, so you're gonna have to think okay, so I know my son's ISF is 55. So that looks like about an extra point seven units of insulin. So what I'll literally have him do is I'll say, hey, what does your pump say, to give you? And let's say it's it says to give him an even for four units just to, you know, throw an easy number out there. I'll tell him, Hey, can you change that to point or 4.7, please, because he's going up, the pump doesn't know he's going up, it assume sees 150 in a straight line. So you add that extra insulin based on time, you're not going to have the time they want even spike. It's understanding that that pump isn't going to deliver based on the change of Delta before meal. And I hope that's not too. too nerdy.

Scott Benner 58:57 No. Are you kidding? That's why you're here. What are you talking about? That's exactly why you're actually I've also, I didn't realize that in clarity that we had settings before the reports set where I don't care about them. Like, like I want to me a high blood sugar's 140 That yeah, that's what I mean, that's what I'm looking for.

Jeremy 59:26 So lots of people don't have that setup. correctly. Now I understand your idea of a highest 140 And there's a lot of us that you know, that is how it is. I prefer clarity to be set to 70 to 180. Okay, and I know that you know, tell me why everybody here everybody hear me out here is Ada standard says 70% and time between 70 and 180 with a SD are a standard deviation of less than 1/3 of the average BG, that is your target. And here's why I use that in clarity to make people understand 72% Of all type ones do not meet that very, very loose standard. And I need people to understand that whenever it's said to somebody to 180, I can say, look, you're 83% in range right now, between 70 and 180. Remember, 73% of all type ones, don't even get that ever, you're doing so much better. Yeah. And if you set it to 140, that's great. If you can get it's like, it's 80% in range between 70 and 140. That's more work than I care to do.

Scott Benner 1:00:49 So I just changed it. And I did it for the last 90 days. And in Target Range 83%. So, you know, so right

Jeremy 1:00:59 now, like Thaman, let's do the 90 days, average glucose of 127. Very low point, one, low 1.3%, in target 91.3, highest 7.4. And very high at 0.6.

Scott Benner 1:01:21 That's interesting, our, our high and our very high are very similar. And our targets very similar. That's interesting, because

Jeremy 1:01:26 we don't put up with it. And we look at things before they happen, and we take care of them before they happen. It's trusting what you know is going to happen is going to happen. And making sure you do something about it, you know, don't just I mean, control IQ. Like I said, no algorithm is perfect. Yeah, if you just think that you're going to turn on control IQ, or Omni pod five, for that matter, or loop for that matter or any other algorithm and just be able to set it and forget it, you're sorely mistaken is not going to work out what control IQ does for me, is it provides sleep every night. And a reduction in the time that I have to study things. And the amount of changes I have to make by a better fold of 90%, I still have to do a little bit of lifting. But that's like I said before that comes with with time and experience and understanding how insulin works in your or your child's body and taking things in a very consistent manner. Once you understand how that point, you know, one change and basil is going to hit and you're accurately able to change basil? Or are you correct a low blood sugar in a very consistent manner, things become so much easier because you understand what the impact of the insulin or the carbs are going to have. And your outcomes are going to be more precise and better done. Now, this, I know it sounds like I'm being like so strict, and everything else I'm not. It's just understanding it. And like once I understood it, and I got everything dialed in, I do even less work. Because I've done figured it out for my son. And I've done figured it out for these other people that they can just go on cruise control. And we know that whenever a change in Basal needs to happen, or a carb ratio change needs to happen. It's not a big deal. Make the small change to make the impact and let it go. If it happens, again, make that small change again and let it go. It's not a big deal.

Scott Benner 1:03:42 Right. I think I think what you're saying has far reaching implications to not I mean, is this specific situation you are really motivated guy who's incredibly smart and tuned into this. Obviously, listen to a great podcast that got you going and you've just run with absolutely, yeah. I'm joking, but I'm not joking. I think the podcast is terrific. But you know what I'm saying? So, but what I'm going that is that everyone doesn't need to do it at the level that Jeremy's talking about to get the benefit of the of the big picture of what he's talking about. Because I feel like you're I almost feel like I'm hearing my voice come back through you on a lot of a lot of points about you know, stay involved. You know, pay attention. Don't settle for high blood sugars don't over treat low blood sugars like this. Some. Those things are just universally true.

Jeremy 1:04:38 Yeah. But when those things happen whenever you do give too much insulin or you're too bold, don't let that be afraid. Just that is something that happened. And as long as you say okay, that happened. Let's move past it and keep going and don't get scared with it. If you over treat a lot When he goes in your child goes high. That's okay. That's one high in the time of their life is a marathon, not a race. Don't beat yourself up. I see all these parents beating themselves up that. Oh, well, we overcorrected. And now they're high for the next three hours, and I corrected three hours ago. And it's like, Stop, just stop beating yourself up, take care of it, drop it, learn from the situation and move on. Right, your mental health as a caretaker, is just as important as your child's health. Yeah, do not allow your child's diabetes to take control of your mental status. I mean, I ended up having to go on to Paxil, just to deal with the anxiety. I ended up in the hospital with heart attack like symptoms and ended up being stressed and anxiety. Learn what you can, so you understand what's going on. keep things consistent. So you have consistent outcomes, make small, impactful decisions and drop things that don't work. If it happens one day, it's random. If it happens more than once, change something, don't wait. And then because you get just the third day, it happens, you get frustrated. The fourth day, you start feeling down that you can't take care of your child make the change. And if it's something small, just just try one small thing, and then go okay, that kind of worked. Let's do it a little bit more, and work your way up to being able to do things by yourself, but don't allow this disease to overcome yet.

Scott Benner 1:06:41 Let me let me get some clarity on something you just said. So are you saying that prior to you understanding all of this, the stress was a lot is the stress still there now? No, no,

Jeremy 1:06:52 we live life man. Yeah. So they know everybody. There's some people that say, Oh, your son may not must not be doing anything. The dude, this kid is more active than most. He's not in any sports. He is. He's a nerd like me. He's in all honors classes. He has straight A's. He's in the National Honor Society. The kid, I can't even help him with his math homework anymore. The kids smart is wet. But he is still active. He goes for bike rides, he goes jumps on the trampoline, he wins. He runs around with his brother and sister. He does all types of very active things. He goes to the jump Park. And we do this spontaneously. We don't do it in fear go, oh, well, we're gonna go swimming tomorrow. Oh, guy can't wonder wonder what's gonna happen with his blood sugar. No, take extra carbs go in there, give him some extra cardio before he jumps to the pool. Let them have fun. Let's go. Let's live life. I know it's terrifying. But the thing is that you got to try. And if it doesn't work the first time try again. I think a lot of eventually something's gonna work. Right.

Scott Benner 1:08:03 And I think a lot of the mental comfort that comes eventually is from seeing things happen that you expect. And yeah, and paying attention to the beginning to these things. Your Basal if you're on it, you know, if you're on an algorithm, even more so for insulin sensitivity, but still on just a regular pump insulin sensitivity, carb ratios, correction factors, you get those things close even, and things get better. And then once they're close, then you can kind of see them a little better, that it's not so wildly out of tune that you have to guess. I know that all sounds like Yeah, sure. That sounds easy. How do I do that? I mean, you know, I mean, I've talked about it a million times in the podcast, I think the way you do it is by getting your basil right? First, then start worrying about your meals, your ratios, and then start thinking more about different impacts and different foods correction factors from there, etc. Like, you do have to it takes time to get it straight, you're not going to just your doctor is not going to magically set your settings in the right spot. And even if they do, even if they get like, slot machine lucky, you know, the kid's gonna still grow or you're even as an adult or going to gain 10 pounds or lose 10 pounds or start walking more sitting more and then suddenly those settings aren't right anymore. It takes it takes paying attention. I think one of the most important things you said here's, you know, you got to take a little responsibility and, and put a little effort into it, you know, and not the kind of effort where you're just like I'm trying I'm trying but like focus the effort that that may lead to

Jeremy 1:09:37 a lot of educating yourself properly. Then understanding what is actually going on inside of your child's body and understanding what your body, their body, how their body is different than yours and understand how food digests differently in your body compared to the Here's the other chance to wear index calm do it. Scott's done it, I've done it lots parents have done it. Once you understand what it's supposed to look like, it becomes so much easier to do it yourself.

Scott Benner 1:10:12 And it's a little more relaxing to you know, we see 140 blood sugar for two hours doesn't feel like you've, you know, made some pain for failure. You just realize that that that happens to a lot of people, you know, everyday people would fully functioning pancreas is that are working perfectly. Still see elevated blood sugar sometimes. I mean, I had to eat pretty hard to get my blood sugar to 160. But I still was able to do it with a nerf pizza. You know,

Jeremy 1:10:40 I like crap. And that was not an issue with me.

Scott Benner 1:10:44 That's interesting. Yeah, I had to eat so much just to hit 161 time. Other than that, I was eating cereal like, like, I don't know, if you remember at one point, I took two different kinds of sugared cereal, mix them together in the same bowl and eat them. Yeah, my blood sugar did

Jeremy 1:10:59 I think it was what sugar smacks in Fruity Pebbles pops or

Scott Benner 1:11:03 something like that. And my blood sugar never even went up. I was almost disappointed by it. I was almost like, oh, you know? But anyway, geez, Jeremy, this is great. Like, how long do you think it took you to figure all this out put into practice.

Jeremy 1:11:18 Um, slowly over the course of about two years, I was about 80%. There over three years. I was like, completely relaxed. And like, it is what it is. Let's fix it move on. And was able to just look at things a lot smoother. Now there are those families out there, though, that have those Alpha moms that I love to death. Because whenever they get a hold of me, and I'm like, what do you do for a living and they're like, I'm an accountant. I'm a numbers person. Those people and literally, it takes me two weeks to figure them out. Explain what's going on. And they move right on their way. And they still have you know, under seven agencies to this day. I was that person. I am a type of person that while I was the kid that took the VCR apart and put it back together and it still worked missing three parts. I need to understand what's going on. I'm just one of those people. And I really dove into it. Especially the biology part of you know, what happens in what what why is his body so much different than mine? And why is it doing this? And understanding what the tug of war as you describe it? What can I do on each end of the rope to pull harder, pull less or get it right, you know, that's making small concise adjustments.

Scott Benner 1:12:57 Well, I tell you while we were talking, I adjusted Arden's basil. So I looked, I looked at that clarity report and I thought this, like this a one C that I've been okay with, which is her right around a six because she's making more decisions and, and choosing Bolus and things like that on her own. Without too much input right now, I thought, Oh, this is a reflection of that she's, I don't know that she's, you know, just kind of finding her stride with it. But then when I looked at that report, I thought, That's not fair. Because I have a lot of stability, away from food, that's still a little higher than I want it to be. So I just changed her basil from 1.1 to 1.2, just to see what would happen. And I'm gonna I'm gonna watch it over the next day or so and see if I, if I can find some consistency. Maybe we have incredible consistency. But to find it a little lower, would be interesting. And then I think that'll probably help with the food too. That's happening. The food impacts that are happening, like I said, between probably around 132 o'clock and six, seven o'clock in the afternoon. So I appreciate you making me think about it. So I get busy sometimes to get an amen.

Jeremy 1:14:06 Yeah, and I mean there are and that's that's just the basis of it. There are other things that I do that are more on the ninja level then. Then just the standard stuff. I don't expect people do that like stuff like understanding like, my son eats the same food at the same time every morning during the weird weekday. So what I literally do is I will just like you know, you would I purposely make his basil, a little stronger, about an hour and a half before he eats on a weekday. That's my Pre-Bolus That is not normal. I don't teach people that but the thing is, is like I know that at school, his lunches at the same time, every single day, right? Yeah, and you can't get this kid peanut butter and jelly sandwiches with a bag of chips, a Diet Coke and some strawberries. You just can't get that kid off of that meal. I offer him all different types of things grandma puts in different types of things. It all comes back to peanut butter and jelly sandwiches. This is what I want. Maybe he'll have some pistachios one day.

Scott Benner 1:15:20 So you're upping basil as a Pre-Bolus. Knowing that these meals, these exact meals are going to happen over and over again at the same exact Yes. Okay.

Jeremy 1:15:29 Because it's it's, it's literally, you know, knowing or expecting, you know, the day I'm saying I'm getting frustrated. But expect what you know is going to happen is going to happen. Oh, okay.

Scott Benner 1:15:43 Yeah, I probably should have come up with a saying that was easier to say there. But well, yeah.

Jeremy 1:15:47 And then, like the only variable I have is after lunch and seeing immediately going to go outside and start chasing girls around, or is he gonna stand and do nothing? Yeah. Because Jesus, like, you like the end like, Dude, why are you dumping? And he's like, Oh, I ran around and chase girls at lunch. I'm like, Dude, if you're gonna do that cuts some carbs out of lunch. If it's 80, carbs covered 50 carbs. I don't think you can chase the girls all day long. Jeremy. I

Scott Benner 1:16:22 don't think he knows till he sees them.

Jeremy 1:16:24 Yeah, exactly. I know.

Scott Benner 1:16:27 That's amazing. I appreciate you doing this very much. Is there anything else that we should be adding to this thing? Because I'm going to ask you a question. At the end, I just want to make sure you've got out what you want to say.

Jeremy 1:16:41 No, I don't I mean that that's a pretty good understanding of control IQ and how I do it and how I teach people to do it. And how we how we adjust things to live a more, I guess, productive life while having great blood sugar's and not having to worry all day about diabetes and more.

Scott Benner 1:17:10 So okay, so if I were to come to you, and I'd said, Hey, Jeremy, I use Control IQ. By the way you do this out of the goodness of your heart, you help people?

Jeremy 1:17:20 Yeah. And once again, not an invitation to start messaging me Do not I got four families on my plate right now.

Scott Benner 1:17:29 It's about enough. Jeremy's gonna job you know. So, alright, so Well, that's very kind of you to help people. So if I come to you right now, and I'm like, Hey, Jeremy, listen, I'm on control like you. But I'm seeing, you know, spikes at meal times that aren't correcting for hours at a time. And I'm getting some lows overnight. What do you look at first, you just pull it

Jeremy 1:17:51 from them? Is the seven day AGP report and they're pumped settings. No kidding. And then I maybe ask 20 questions about how what do you normally eat? When do you normally eat? What insulin do you use? Is bedtime, consistent on a nightly basis? What kind of activity does your child choose to have? Or that type of thing? Or do they are they on their period yet? If so, is it regular? Just the normal questions that, you know, either your CDE or your Endo? Or

Scott Benner 1:18:32 should probably be asking Yeah. And if

Jeremy 1:18:35 they ask those questions for a very specific reason, because it paints a picture, at least in my head of when I look at that AGP report. What am I actually seeing? Am I seeing basil that's way off from a kid that has no activity and eats five or six times a day nonregulated in time and whatnot? Do I have a very protein based diet? Do I have a low carb diet? Personally, Damon, he eats whatever the hell he wants whenever he wants. Most I've ever Bolus for in a single meal was 543.

Scott Benner 1:19:22 Wow. 543 carbs.

Jeremy 1:19:24 Yes, you go and look at these damn milkshakes at this. This burger shop that's up here. And they're just gigantic and they're like $17 and they have waffles sticking out of them and everything else and you look at it, you start thinking and you you're like, yep. And then we came to 547 after staring at it for about 15 minutes. And that's what we did and

Scott Benner 1:19:47 how much insulin was that for him? No. Sorry about what

Jeremy 1:19:54 it was. His carb ratio was six or six point Five at the time. Um, let's see here. I can divide by 690. Some odd units.

Scott Benner 1:20:10 Wow. Did a 90 unit Bolus? Yeah. And he wasn't low. Nope.

Jeremy 1:20:17 You know, did I have to hit it again about an hour and a half later when I knew the fat was going to kick in, because I trusted that I knew what was going to happen is going to happen. Yes, I did. Do you think control IQ is going to be able to do that? Or Omnipod? Five or loop or anything? No, it can't. You have to be proactive. Do it. override the pump. All pumps can be overrated, whether it has an algorithm or not.

Scott Benner 1:20:41 Yeah, Jeremy, I gotta tell you, if I had if I had a diploma for this podcast, you'd be the first one to get it. It's amazing. I would not have the nerve to give that much. I don't think and I'm pretty ballsy about it. Wow. That's, uh, I'm assuming most of his bosses are not nearly that large. But yeah, but that's a great example of

Jeremy 1:21:07 he sees like 100 car Bolus maybe once every other week. Dinner averages are about 80 to 90 carbs. Lunch is at 90 carbs. Breakfast is 65 Every single day.

Scott Benner 1:21:23 Hey, Arlindo had Arden just had a lunch. That was a salad. And then she asked for a bowl of vegetables. She had rice, basmati rice, corn, steamed corn and steamed carrots. And it's a pretty big bowl of, you know, a vegetables. And I think we bolused I know it was I know we picked 45 for the vegetables, which was the carriage the rice and the corn. And then I think the salad was even 20. So she got like 65 carbs for salad and vegetables this afternoon. And her blood sugar still sticking at like 120. So we missed a little bit on

Jeremy 1:22:08 that. That's fine, though that that's low glycemic food. Do you understand that? But I mean, you didn't to me, you didn't miss? No, it's like in my brain. Like, the 140 is okay. But I'm sure once you saw that you're like sticking a little bit. You either let Luke get a little aggressive on the on everything or you told her to take a half a unit.

Scott Benner 1:22:33 Yeah, I told her to add. I told her to add three carbs to her last Bolus, which is something you do and loopy you can't do in in some of the proprietary algorithms, which I think is if

Jeremy 1:22:46 you can do it in control IQ, you can add carbs to an old but I, I prefer not to do it. I prefer a straight overwrite. Okay, because once again, I know what half of a unit is. Now if I put three carbs in. If it's been more than one hour, since the last correction, it's also going to correct his blood sugar. It's going to add extra, or it's going to take away extra depending on delta. So I would rather say okay, I'm looking at his line. It's fairly straight. I know I OB says he has two units on board, but it's not real. So I'm going to hit him with a point font, because I know what point by dots, right? If I was to put three extra carbs in, it may give him point two, it may give him point seven, it may give him point six depending on which way the arrow is going, which how his blood sugar is going. If he's had a correction in the last hour or not. If there's been an auto Bolus in the last hour or not, there's so much very variability there. I'm not going to deal with that. I know what half the unit will do and what the half the unit let him go do we override the pump all day long every day? No, no, I don't either. It is so dialed in that you don't have to. But when you do, we do.

Scott Benner 1:24:14 Yeah. Hey Jeremy. I have to tell you i i know that after you talk to somebody the first time you probably Converse back and forth with them and text and things like that and takes some days and weeks probably to to adjust it right down. I found myself wishing we could record every interaction you had with somebody just to see how it happens. I know we can't but yeah, it that's the piece that's missing is that somebody like you remind people you work in a motorcycle shop. Is that right?

Jeremy 1:24:44 Yes, I'm I'm the marketing manager of a Harley Davidson dealership. That's I actually well, I'm actually from two dealerships here in town. We own a sister store. I ride Harley's I own Harley's I have a beard You're a typical biker with weird ass hair cut. And I swear a lot, I drink Mountain Dew a lot. And I talk about how fat I am all the time,

Scott Benner 1:25:12 it turns yourself into a pretty damn good endocrinologist. So yeah,

Jeremy 1:25:17 I'm not gonna go into our Endo, not gonna say that you're not going to work me into that. But I mean, the other awesome thing is like, I may be all those things, I may be a pancreas to my son and a few other kids and whatnot. But to me, giving back to the community is what really matters. And like, I am also a voting board member and a marketing director for the Montana youth diabetes Association, which is after the ADA camp, left Montana and left all the type ones high and dry. All the volunteers that have been going to that camp for since they were kids said, let's get a camp going and get these kids back to camp in Montana. Very nice. And so we, I'm giving back that way I have to, because the community has given so much to me, and my son's health, you know, mostly, you know, the podcast and you and everybody in the group that I have to give back some way that I can.

Unknown Speaker 1:26:27 Yeah, no,

Scott Benner 1:26:29 I understand feeling like that. I think you're doing amazing stuff to on top of everything else. And I appreciate you coming on here and sharing this with people because there's just no, nobody really tells you what to do. They just give you the thing, and then it works out as well as it does. And then they call that good. And, and that's where it stays forever. So

Jeremy 1:26:48 just understanding how the algorithm works and, and how it doesn't work and when to step in and when not to step in. And it's time and experience and not just sitting on things and doing things and trying things and failing and succeeding. And you know, you do something enough, eventually it's going to work out. Yeah.

Scott Benner 1:27:12 I agree. All right, Jeremy, I can't thank you enough for doing this man. I really do wish you would have named your kid Thanos because when you say his name, that's what I hear anyway. But that's not that's not your problem. It's mine. I'm glad he's doing so well. And that you're doing so well. It really is. It's a testament to what I mean what you can accomplish if you get good information and you want to put some effort into it. It really is astonishing. You know, I hope you're proud of yourself. Seriously.

Jeremy 1:27:43 I try Yeah,

Scott Benner 1:27:44 no really, man it's a it's really something that you've accomplished. So that boy might never know but I know and the people listening know so like I said I would I would send my first my first ever degree off from the podcast will go to you if I ever make one. Sounds good. Don't look for me to do that. That sounds like a lot. But I really I really can't thank you enough for taking the time to do this. Thank you very much.

Jeremy 1:28:09 Not a problem Scott.

Scott Benner 1:28:20 Well, first we want to thank Jeremy for coming back on the show and sharing what he's learned about control IQ. And then we want to thank us Med and remind you to go to us med.com forward slash juicebox or call 888-721-1514 To get your free benefits check thanks also goes out to the Contour Next One blood glucose meter. You can find out more and get started right now you can actually buy one right there at this I know you can buy one at my link contour next one.com Ford slash juicebox All right, everybody. Thank you so much for listening. What else should I tell you? Oh, there are many other episodes about algorithm based pumping. I have a list of them in fact, let me tell you what they are. Now what the hell we're all here together right? What do you do a big hurry to get back to your job? Let's just listen for another second. Okay, here they are. The first episode I ever done I ever done boy. The first episode The episode is going well. The first step the first start over. The first episode I ever did about an algorithm was looping it was episode 227 called diabetes concierge. Did one then called a loopy few months episode 252 Then episode three or four loop de loop Episode Three toe of Fox in the loop house part one episode 313 Fox in the loop house part two, Episode 326. We talked about the mini med 670 G, and an episode 420. Fox in the loop house part three, those are with Kenny Fox, all of those. In episode 537. Haley came on she's a tandem pump trainer. In Episode 601, we told the story of how I started looping. In an episode called Gina made me loop. Episode 620 was an exclusive interview with on the pod CEO called exclusive on the pod five interview. And of course today, in Episode 662, Jeremy breaks down how he uses control IQ, we're going to be talking a lot more about these algorithms in the future. So if you're enjoying these, go check out the old ones. And if you just got done with this and thought I'm not getting an algorithm to check out the Pro Tip series, and they will definitely help you pump without the algorithm. As a matter of fact, they'll help you pump with the algorithm too. But you know, I'm just trying to find a way to mention some more stuff in the podcast. I think you see what's going on. Alright, thanks again for listening. Your support means everything wonderful ratings and reviews pouring in for the podcast, downloads and streams are at an all time high. And all that means that you are sharing the podcast with someone else and for that I cannot thank you enough. It is the most important piece about how the podcast grows. A huge thank you to one of today's sponsors better help, you can get 10% off your first month of therapy with my link better help.com forward slash juice box that's better h e l p.com forward slash juice box. If you've been thinking about speaking with someone this is a great way to do it on your terms betterhelp.com forward slash juicebox I also want to thank Jeremy for you know even though this is the best of He really put his heart into this one it's a fantastic episode that just people seem to love over and over again. So thanks so much Jeremy we should have you back sometime. And let me thank touched by type one for their sponsorship and support and remind you to go to touched by type one.org and find them on Facebook and Instagram.

#919 Weight Loss Diary: Two

Erika talks to Scott about the hollow feeling that came when food left.

+ Click for EPISODE TRANSCRIPT

Scott Benner 00:00 Hello friends and welcome to episode 919 of the Juicebox Podcast many of you know I've been using we go V for weight loss and it's been working incredibly well takes away your hunger and your appetite and so much more than losing weight. It's really been terrific so far. But this thing I started noticing was a hollow feeling and emptiness. Like, like, I guess that like food, like the preparation of food, and I just have not been as involved with food as I was before even not to say that I was a lot in the past, but it felt like something kind of been taken away from me. And I wanted to talk it through with Erica So Erica Forsythe is here to mostly listen to me and then offer her insights. But I mean, this is kind of a week Ovie diary, I don't even know what to call this one. Exactly. Anyway, you know how it goes with our guy, start talking to her about something. And then before you know it, I tell her way more about my life than you guys should know. That happens again today. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, please Always consult a physician before making any changes to your health care plan are becoming bold with insulin. And some of you live in the state where you can hire Erica Erica forsythe.com. She's a really terrific therapist who actually has type one diabetes. This episode of The Juicebox Podcast is sponsored by us Med, you can get your diabetes supplies the same way we do from us med us med.com forward slash juice box to get started art and gets her on the pods and her Dexcom is from us Med and you could too. Eric, I appreciate you doing this with me. Oh yes, this is probably going to turn into therapy. So

Erika Forsyth, MFT, LMFT 01:59 I don't know I am I am not your therapist.

Scott Benner 02:03 And I want to be clear that I know that I witnessed something that I thought would be interesting for people to talk about. I guess just for people who don't know, I began taking we go V for weight loss. Eight weeks ago, I'm on my eighth injections. So maybe it's seven and a half weeks ago, but about that long ago. For people who don't know we go V and ozempic are literally the same drug. They're branded differently. So they can be dispensed differently so that doctors can suggest using them differently. We go V is meant for weight loss. ozempic is right now I think for people with type two diabetes, although I'm hearing for people who have type one are using it and having a lot of great success with it. Anyway, the way my understanding about weego V was that it's a GLP one, and that it was going to impact me in a couple of ways, I was told that it was going to take my mind off of food and that it would help me feel fuller. This was the extent of how it was explained to me. I have heard people say that there is research at hand that is not complete yet. It says that it might signal your body to burn fat. When when you're losing weight, which, which makes sense to me. And I'm going to tell you a lot about it now. So to say that we go v makes you stop thinking about food in my experience I'm sure other people might be different is an understatement and a half. So I am never hungry. Like mentally, like I never think oh, I'm hungry or I should eat or like there's my brain is never telling me about food to the point where you have to actually remind yourself to eat on certain, you know schedules like are you just you just won't do it. Like it just it'll just never occur to your stomach doesn't crumble. Your brain doesn't say oh my god, I haven't eaten. Like I don't understand how it all works something about the hippocampus way out of my league. But oh my gosh, does it work? And there's been this sort of unintended consequence that I didn't expect. So I am not a food person to begin with. Like I don't run around going like oh, I can't wait to try this or Oh my favorite meal is that like I don't have those thoughts to begin with. But um I am feeling a loss is the only way I can put it. And the first loss is by the way in seven weeks. I am sad Been 13 pounds lighter.

Erika Forsyth, MFT, LMFT 05:01 Wow. So that's a great loss.

Scott Benner 05:06 I'm starting to see myself now. Like in video, and I think I look different. Like you do. Yeah, it's crazy. But that's not the last I'm talking about a loss I'm talking about is I, I'm still eating. Okay, so I want you to understand like, but I got up this morning, and I got like a yogurt. I had like a coconut milk yogurt. I might be turning to the Jeremy. But But I found these these I was trying to avoid dairy because I wasn't sure how dare he was for me. Not really sure. But I found these coconut milk yogurts that are really good. So I had one of those this morning. And I ate like a half a banana. And I went out and did something. And I came back. And I've already recorded the podcast once today. And I had like 10 minutes in between that recording and you and I talking. And I thought I should eat something like anything like right now because I've not eaten enough food today. Right? So I went downstairs, I ate something very quickly. But not because I was hungry. And so cooking, and eating and hanging with people and watching television and going to the movies. And so many other things in my life are taking on a different flavor. That and it's confusing, because now I have all this extra time that I used to fill with food. And I didn't realize it. And it feels like something got taken away. That's why I put you on today. I don't know how to explain it. Because I didn't care about it to begin with. But if I sat down and watch TV at night, I probably would have like made popcorn, or done something like that. And now it doesn't occur to me. So it doesn't happen. And it feels it's a I don't know how to say it. It feels like somebody took something out of my life. And nothing. But that's not the biggest problem. The biggest problem is that it didn't get filled in with something else. Does that make sense? Yes. Okay, tell me what I'm thinking because I don't know what I'm experiencing Oh,

Erika Forsyth, MFT, LMFT 07:24 I will say I do know, others who are have tried or On we go V or izembek and have reported the same thing where they forget to eat, because of all the reasons why you just explained and so they are having to retrain their body to eat. As I think you said, as you know, you need energy you need, you need fuel, you need nutrition, you need calories to function. And the other part of it, this loss that you're experiencing it, it feels like you had these big behaviors that were connected and associated with food. Like sitting down, watching a movie, going to the movies popcorn, or sitting at a maybe on a holiday, they their mother's day you're associated with sitting around eating a big buffet. And when you don't have that need or desire to eat, those two behaviors that were connected, are being separated. Right, there's a and it would be natural for your emote your body to think and feel. Wait, I used to do this and I met maybe you there was enjoyment? Did you enjoy those, those two behaviors connected to one another. And so you're feeling the loss because you don't have that, quote, enjoyment that you wants associated with one of those behaviors.

Scott Benner 08:53 It is exactly like my kids leaving. Like it's the same. It really is the same exact thing. Like there was this thing I used to do. And I enjoyed it, I guess like like the food I guess I never thought of it as an enjoyment. But I guess there was some enjoyment coming from it. And with my kids, I love being with my kids and I love like I even love just like when they have problems and we get there like work them out and like all that stuff. And now they just they're off on their own handling their own stuff. And it left me I think I've said this to you in the past, like I feel hollow a little bit that they're gone. But then I started recognizing that same feeling around eating. And I was like that shocked me. Because like, because I really am if you said to me, Scott, what's your favorite food? I'd be like, I don't know. Like I don't I can't answer that question. I've never been able to answer that question. I had a great lobster tail in the Bahamas wants but you know what I mean? Like, I didn't come home and like go I need to find more lobster. Or like like I just don't I didn't think of myself as a person who thought about food that way. But now I'm like, I almost feel like I need to find a hobby to take up the, whatever food was doing for me, and I don't even know how to put it into words, honestly.

Erika Forsyth, MFT, LMFT 10:15 I wonder if you know, there, there are situations where people do use food, you know, as to feed some emotions sometimes, right that I put in quotes, like, if you're feeling sad, you might turn to your bag of chips. Because you know what's going to be there. And then you get the all the chemical responses, that tastes really good, you like the salt, so you keep going back. So it's interesting thinking about the switch, where people are trying to use willpower and go on a diet, and then they realize why I was turning to food when I was sad, or when I was bored, or when I was feeling empty emotionally. And then you're trying to use that willpower to not go to food and replace it with other behaviors. But it's interesting that you're not having to use willpower to interrupt that whether or not you're using food to meet some emotional need or not. That behavior is eliminated.

Scott Benner 11:14 But it has to be like I discussed with Jenny one time that I realized, like I grew up very poor. And like, you could never go to the store and get an extra thing. You got the stuff you were there the ingredients for the things you were doing. There was never any more than that, right? And that I told her that I realized that at some point, I was grabbing a bag of candy in the grocery store that I did not want, because I could afford to buy it. It was almost like a almost like a power move that nobody saw. But me. I was like, I can just buy this if I wanted to. Like like that kind of. And by the way, this bag of candy was like $2. Like, I was really broke. So I was like, Look at me, I can just buy a $2 bag of candy. You get me up to about $5. And you'll see how cheap I am real quick. I'd be like, No, thank you. But But then I would buy it. And then it would die. I'm like, Well, now I have it. I could hear my mom's voice in my head. We paid for this food, you better eat it. Right? And then I would open it. And then I can I can remember feeling embarrassed that I was eating it. Like if privately like I'm like, I don't really want this like I bought it like as this like kind of low key power move. But now I can't waste it. Because I paid for it. Even though it would be well worth $2 for my health to just take it and throw it in the garbage afterwards. So and by the way, wouldn't that be the biggest power move is to buy it and throw it away. Like I can afford to like just throw this out. But it never had those two conflicting problems. But my my reason for wanting to record about it is because I thought if this is happening to me, a person who does not think of food like that, like I like consciously do not like, oh my god, like what is this drug about to show the world. And more specifically, people with diabetes who are going to get, they're going to get given this drug a lot. Like I know right now it's not for type ones, but I'm already seeing type ones getting it, it's going to happen more, your blood sugar is going to be more stable on it, you're going to use less insulin because of it, you're going to have better outcomes with your health, you're going to lose weight, if you have if there's weight to lose, you're not going to be like, you know, a slave to food, if that's been your thing. If this stuff works for you the way it's working for me. And I thought, I don't know that I was not ready for this. Like I did not think like, if you would have told me for eight weeks ago, Hey Scott, like foods gonna get removed out of your life and you're gonna lose weight, I would have thought like, well, that's great. That's the whole story. And instead the story is like, I'm like, oh, no, like, what do I put in that space? Like, that's the thought that starting to come up like I need to put something valuable into this space. And luckily, I'm not like a I'm not a very compulsive person to begin with, or I might have already started backfilling it with something unhealthy for me. So I didn't want that to happen to people, I didn't want them to like, have that loss and then have nothing to replace it with. And not to expect it to come because like as you're losing weight, like just on the surface, you're like, This works like this is genius. Like I can't tell you I stand up I take a pen like this. I go click it clicks again. I record for a couple of minutes because I'm making a weak Ovi diary and I'm out and and then I wake up the next week and I'm lighter.

Erika Forsyth, MFT, LMFT 14:44 It's amazing.

Scott Benner 14:46 Oh my God. And so what is it? I mean, I know you don't know like, it's not like you're my doctor. I'm not saying that but like, I'm not imagining this right, like something got taken away.

Erika Forsyth, MFT, LMFT 15:00 Yes, and perhaps the maybe there wasn't as and I hear you say that you were not You're not a foodie, you didn't feel like you were using food and unhealthy ways you didn't have a, you know, disordered eating behaviors or patterns. You weren't not you know addicted to food or, or times of day. But yet with the elimination of the desire or, or physical symptoms I need to eat, there's this loss. So perhaps there I think naturally, food can be a social experience, right? People go out to dinner, you you cut people over, you invite people into your home, there is the social piece. I'm not sure I'm hearing that as a loss, but just more of these kinds of one on one experiences, or do you feel like you're having that as well? Having had

Scott Benner 15:53 that opportunity? Yep. Yeah. Okay, because my wife is also using we go via at the same time, so we're both like looking at each other. Like, don't forget to eat. Yeah. Yeah, I did go to visit Arden for a weekend a few weeks ago. And you go to a restaurant, I was like, I'll have a piece of yours. Or like, I don't know, like, I can't eat a whole thing. Like you have no idea how I got up yesterday morning, I took two eggs, I whisked them up, I put them in a pan with a little bit of butter, some mushrooms, and maybe three ounces of chicken. And I cooked them all together and put them in a wrap. And halfway through the wrap. I thought I cannot finish this. Like, like, like two eggs is now a crazy amount of eggs.

Erika Forsyth, MFT, LMFT 16:42 That is That is crazy. Yeah.

Scott Benner 16:44 So the next day, I got one egg and I was like, I've learned my lesson here. I'm not going to waste another egg. And but it's just so when you go into a restaurant, I mean, you know, like my wife the other day, she's like, I'm gonna make a BLT. And I was like, okay, and I was like, I'll try a piece of bacon to see if I can eat it. And like, and like I had one I was like, that was good. And then I just, I didn't want it anymore. So I took one piece of bacon and broke it up and put it away. And then the next day, I made some shrimp for myself and I sprinkled the patient over top. I was like look at me being fancy. And and I just saw but even that like I sauteed six shrimp and crumbled a piece of bacon overtop of it, put some lettuce with it could not finish that trip. And it's just it's insane. Like you just eat and I go full now.

Erika Forsyth, MFT, LMFT 17:35 So Norm so pre free would Gobi? Would you once you've started to feel that fullness, would you keep going to finish the plate because of like old patterns of like, I paid for it, I made it 100% get to eat it, you would have like kind of pushed through that little discomfort and kept going, I

Scott Benner 17:51 never would have thrown a shrimp away. No. Or I would have made enough to save half of it for another meal. And then that would have been okay with me, I would have been like, Okay, well, like I can eat half and put away the rest whatever else I don't want. But if I would have made six and they had to go in the garbage afterwards, I would have eaten all six of them whether I wanted them or not. And and I don't know how to explain it to people. But they say it makes you feel full, which is not. It's not. Not right. But it's beyond that. Like it just sort of, like I could have kept beating. Like I don't know how to explain it's not like you're it's not like there's actually a fist in your stomach and it's pushing you back up and you just can't do it. You're like you just get like I feel full. I don't want any more. But you could eat more. You might feel well afterwards, but you could do it like you could physically consume it. You just like for me, I just I can't find the I can't find the motivation to do it. I guess it's like it just it's not that important to me to say that you don't think about food, like that's absolutely true. Like it's it's three o'clock now here in the afternoon. i The one thing I've learned about we go V is that if I eat anything that really takes time to digest because it is going to it makes you feel full by slowing down your digestion. Like I need to eat dinner before six o'clock or I will absolutely have some sort of heartburn if I try to lay down even four or five hours later. So even that like you know how you're always telling people don't eat after six like don't eat at night like buy money but like yeah, I won't do that. But then you're watching like a movie and you're like well, maybe I will like like you to like make something with it. I can I know not to do that. That will make my stomach uncomfortable if I do that.

Erika Forsyth, MFT, LMFT 19:41 So you're learning to truly listen to your body. Yeah, what you can and can't tolerate.

Scott Benner 19:51 We receive Ardens Dexcom G seven and her Omni pods from us med us med.com forward slash G Spock's are call 888721151 for us med has an A plus rating with the Better Business Bureau. They are the number one distributor for FreeStyle Libre systems. Number one specialty distributor for Omni pod dash. They have the Omni pod five. They're the number one fastest growing tandem distributor. Oh my gosh, number one rated distributor index. com customer satisfaction surveys. How in the heck, over 1 million diabetes customers have been served by us meds since 1996. And they always provide 90 days worth of supplies, and fast and free shipping. They care everything from insulin pumps and diabetes testing supplies the latest CGM like the FreeStyle Libre three, and the Dexcom G seven. They accept Medicare and over 800 private insurers. Us med.com forward slash juice box. I got an email yesterday morning from us med that said I can't even tell you what it says on one second. See how easy this will be. Second, email us med Hi Arden. It says hi Arden. This is your friendly reorder email from us med dear art and your prescription is due for a refill, please use the order button below to place your next order and then just click on it. And that's that. Us med.com forward slash juice box. That's to get your free benefits check. Or you can call 888-721-1514 Get your supplies the same way Arden does from us met yet we'll see that's the thing is I'm afraid people will hear this and think, Oh, these people are using a drug to trick them into doing what their willpower should do. But it's not. It's not that. Like, I wish I wish people could understand like, I'm not I was not an overeater to begin with. Like, you know what I mean? And I always had the feeling. And it's what I went to my doctor and said, I always had the feeling like I don't think my body works correctly. You know, and now, it's funny, my wife and I were talking about the other day she heard another doctor talking about this. But this doctor was starting to kind of compare thyroid medication with the G LPS mean, meaning if you have a thyroid condition, your body might be making T three, but your body might not be taking it up properly. Or you know, so you might need like, you know, a, you know a pill that will just push enough in that your body gets what you need. And then you can Yeah, then your thyroid works correctly. What if I guess the question is like this is a lot of, you know, assumptions. But what if my body's not making GLP enough, or it's making it but it's not taking it up enough? Because all I can tell you is that my biggest takeaway I thought would be the weight loss. But it's not my biggest takeaway is I feel like my body's working correctly. I just didn't eat that much food before. Like I used to say, like, you've heard me say it. Like, I'm the fattest person who doesn't eat that you're ever gonna meet in your entire life. Like I just I don't take in that much food. And it just never made sense to me. And now my body appears to be going to where it like to where it's supposed to be. And it's not like I'm losing like, a ton of weight, like all at once. It's not like some big drop off. It's 17 pounds over eight weeks, which is I don't know, what is that? The two pounds a week? You know, it's a reasonable weight loss,

Erika Forsyth, MFT, LMFT 23:44 right? Yeah.

Scott Benner 23:45 So I want people to hear that if you're having trouble, like, like, my wife talks differently about food, like she she says like, she's like, I have a food voice. She's like, I get up in the morning. And I start thinking about what am I going to eat? What sounds good. And as soon as I'm done eating, I think well, what's for lunch? Next? Yeah, then what's for dinner and blah, blah, blah. And she's like, I have like a like a food voice is the way I would describe it. I don't I don't have that. Like, I've never had that. But I I don't know that I'm eating any differently right now than I was before the we go V. Like maybe less, but not that much less. Even. Even here. I'll admit this. That's interesting. Do you want me to admit something? The other day I thought I'm going to test that we go like a friend. I want to make sure it's on my side. You know? Yeah. So I was out picking up stuff at the at the pharmacy, which of course makes me laugh because I bought a buy a box of candy at the pharmacy. So I bought a box of red hots, so I don't know what red dots are, but they're sending me like chemicals with sugar. Pretty much what I did.

Erika Forsyth, MFT, LMFT 25:00 They're pretty good. Yeah.

Scott Benner 25:01 And I, in addition to everything I ate that day, I made I made certain to try to finish as money of the red hots as I could, I couldn't get through the whole box, but I ate way more than human beings should eat. And then I woke up the next day, 1.2 pounds lighter than I was the day before. And I thought, I'll be damned this stuff works.

Erika Forsyth, MFT, LMFT 25:27 Because Give me some more better. Yeah,

Scott Benner 25:30 well, yeah, first of all, what I just learned is I can have red hots. We go V. But I don't mean it that way. Like, I don't mean like ejecting the thing. So I can do something unhealthy, and it won't count because I still ate the red hot. So I'm not unaware of that. But I'm telling you that before we go v, if I had a red hots overs, I would gain weight, like my body would just start to immediately retain retain water, like, immediately. And it's just not doing that anymore. So, but so I guess my bigger cause concern is I don't know what to fill the feeling with. And this, I think, is why I'm talking to you and not just somebody else, because I'm worried that I'll feel it was something that's not good for me. And I don't mean like heroin, I mean, like, emotionally not good for me, or something like that. Because, because I feel like there's more time in the day now than I know what to do with. That makes sense?

Erika Forsyth, MFT, LMFT 26:34 Yes. So if, if you were my client, which you are not, I would encourage you to think about, so the behaviors that you identified earlier that you associated with food that you no longer are consuming food while you're doing that behavior. So like, let's say, sitting at nighttime watching TV, checking in with yourself, okay, what are you? Like, in that moment? What are you feeling? Are you feeling sad? Are you feeling empty? Are you feeling like you want to connect with your wife? Are you feeling like you want to connect with your children? Or your friend or a family member? Like, what is it and that this will take maybe some time? And, you know, over mass experiences of feeling like, oh, yeah, this is I used to eat, but maybe that was mindless. And I just did it, because that's what I do when I sat down to watch TV. But really, I'm wanting to have more, you know, connect intimately with my wife, emotionally, physically, or I want to have a conversation with my family, a family member, or I want to challenge my brain and stimulated and try something new. Maybe I'm bored. And I was eating because I was bored. So I want to learn how to knit while I'm watching TV or whatever. So thinking about in those moments, what is the emotion? first?

Scott Benner 27:59 Okay. All right. So when I feel the hollow, because it feels hollow? Yes. Right. When I feel hollow, I need to wonder why. And if I could have done this healthily as an adult, I probably wouldn't have eaten in those moments, either. Right?

Erika Forsyth, MFT, LMFT 28:15 And maybe, maybe that's part of what your awarenesses these these last two months is like, Oh, maybe I was just doing it. Because I did it. It was habit. Right. You were maybe meeting a need that didn't need to be met by food. But, you know, we all do it at times. Yeah. And so that it's this kind of this beautiful awareness in addition to the weight loss that you're experiencing, even though it's painful.

Scott Benner 28:37 Yeah, no, I I agree with you. I think that this is gonna sound strange, I guess. But I think the weego V is helping me understand way more than like my physical health, like so. Two days ago. This goes back a couple of weeks. Arden asked if we could go away this summer. Like we are not vacation people like we don't go away. We were my wife and I are like workers like we work too much. And Arden's like we should go away this summer. And so Kelly's again Sure we'll go somewhere. And then Kelly's like, Well, do you want to bring a friend and then it just started to get convoluted and before you knew it, like the three of us going away turned into like, well, maybe Cole could come to and his girlfriend and like next season like nine people like are trying to go on vacation. And it's not really something that like financially we should be doing right now. And so my wife kind of like put it in my lap the other day, she's like, You got to find a place for us to go away to and I was like, Wait, me was like, I didn't agree to this. But okay, so anyway, I spent the day kind of editing in my ears but on on another computer. I was just looking for a place where nine people could go and who could fit everybody's like needs as far as like scheduling and finances and like you know, all this stuff. And by the end of the day, I couldn't get it done. Like I just couldn't figure out how to do it. And I can't tell you that I am not normally this person. But I was so frustrated and upset. And I felt like I was letting everyone down. Like I don't this is not me like normally I wouldn't this would not be my takeaway from this. I had that adrenaline feeling in my arms. Do you know what that DNA mean? Like, like, you feel like you have to try to shake it out of your fingertips. Like, like, I was so angry, that it wasn't working out and disappointed in myself. And like, felt like I was letting people down. And so worried that I like all that stuff. And when I was going downstairs, I thought, tell Kelly, how you feel. Like start with how you feel. Right? And uniform. And I did it. And it worked. I was like, Oh my god. 50 years. Because I recognized while it was happening, that I could have gone downstairs and said, I can't believe you put this on me. I can't you know what I mean? Like, I can't believe like you said we could go when you fix it. You don't mean like, or that like one of the kids that was coming along, just kind of couldn't afford the same thing. Everybody else could afford it like, well, if we weren't taking that person with us, then we could like, instead of doing any of that I just came down and I said, I'm frustrated. I'm upset. I honestly feel like I'm gonna cry. And I feel like I'm letting everybody down. But I can't figure out a way for us to do this. And I think that just has to be okay. And then we had a nice conversation about it. And it was just okay. And I was like, Oh, man. Eric is not really my doctor. But I really think this is great that she's been coming on the podcast. But I was so like, like, aware of how Holloway feel right now because my daughter's in college, my son's moved away. And now I can't even figure out how to do this. And I have food is now gone too. And I so easily could have like lashed out about any of those things. And instead, I just I just like don't do that. It's not like I stopped myself. It's not like I was coming down the stairs and like some sort of murderous rage. And I turned I talked myself out of it on the way down the stairs. I stood up, I assessed myself. And I thought this is what's happening. Go be honest about what's happening. And I just didn't have any ego about it at all. Like I just said, I can't figure this out. And then when it was over. I wonder when it was over? Did I eat anything? I wish I could remember, I wonder if I grabbed like a snack or something I wish I could remember back to know if I did or not. But yeah, that would have been interesting. Oh, hell. All right. I almost did a great job on that.

Erika Forsyth, MFT, LMFT 33:11 Though, I was gonna ask you would maybe would you have it sounds like this is not your MO but free again? Pre two months ago, would you have not been in tune? You know, with that emotion, and maybe had filled it with either food or something else? Like maybe there's this, you know, clarity of mind when you're eliminating these other things that are you're stuffing yourself with other either food or other things?

Scott Benner 33:39 We'll see. That's interesting, because I'm starting to wonder as you were talking and as I'm reflecting over what I just said, if maybe this feeling that I feel is hollow, is really just good space. Does that make sense? Like maybe my life was too packed with things and like distractions and whatnot. And now I actually have some space. And maybe I shouldn't be lamenting the space. Maybe I should be like, happy that it's here. That's what I just thought while you were talking. Huh?

Erika Forsyth, MFT, LMFT 34:13 Yeah, yes. Interesting.

Scott Benner 34:15 Okay. So maybe I brought you on under false pretenses. Maybe the hollowness is just awareness. Like maybe I'm just not being pulled 1000 directions. And because of that, I can kind of see, like, you ever hear people say like, my wife and I fight the most about the kids. Right, right. Like, because it all feels so dire. I just interviewed a lady this afternoon. Right? Who I could tell while we were talking that she just had this pressure. Like if she just made like 10,000 good decisions, her kid would turn out okay. You know what I mean? And I and that's a constant like, like that pressure hits you constantly. And now I don't feel that way like my kids are gone. There. Okay, they're doing well. And I'm not giving all my time off. Oh, wow, this is interesting. So I'm not giving all the time off to the thing I used to, I gotta find something else I love. Oh, I see. Okay. First, it should be made right. Right, first I take care of myself. And then I make sure I'm interacting well with other people. And then I get comfortable with the silence. That's it.

Erika Forsyth, MFT, LMFT 35:30 Pretty much. All right, that's it just just that easy.

Scott Benner 35:33 I usually pay you $40 For this next one. Which would not be right, because you're not licensed in my state. So we can't do that. But this is a podcast and that thing, you are not giving me therapy. But did I just did I walk through that correctly?

Erika Forsyth, MFT, LMFT 35:50 I think you are creating the space that you have created. Intentionally but that also environmentally given the children are gone out of the house that has forced you which has been I know that's been kind of painful, right? Like you've been feeling bored or lonely. Yeah, and and then the elimination of the food that maybe was meeting some sort of need sometimes is now also removed, you now have all this space. And that has allowed you to feel maybe feelings that you hadn't really allowed yourself to feel or had the freedom to feel

Scott Benner 36:32 right. Yeah, I wonder. It is hard. I, I was standing at the sink in my kitchen last night. And I can sort of see out. But there's a road obviously it goes past my house. And a car turned onto my street is the exact make model year and color of my son's car. And I got all like fluttery inside I thought oh, Cole's home. And I realized he's not right, because he doesn't live here. And I was standing there. My wife was in the other room, I just out loud. I went off. And she goes, What am I calm, we're gonna cry. It's like, I was like, I know, I'm gonna cry now telling you about it. And I was like, damn it. And she's like, why I'm like, I just saw a car come around the corner looks like Kohl's car. And I don't know, like, I'll be alright. You know, I mean, they just kind of wiped tears way out of the corner of my eye. But I'll share with you. I just said that, like, there's not a lot of people listening, but I'll share, I'll pretend I'm just sharing with you. When my father left my mom. And I got really upset, I would usually get really upset overnight. And I would sneak downstairs and sit in the bathroom. And look out the window. And I would pretend that every car light that was coming towards My House was my dad coming home. And then I would let myself feel really happy until I realized that wasn't his car. And then I would do that until I felt okay that I could go to sleep. He used to do that a lot when I was little. So anyway, that's, that's why my son's car like hit me so hard, I think. Because I'm not an idiot. I know. He's not in New Jersey. And like I've seen other cars there. So I just think I was standing there. We were already talking about something. I was feeling vulnerable to begin with. Then I saw his car and then it hit me really hard. And then later I thought, Oh, I used to do that with my dad. Like, you know what I mean? So has everyone not pulled a family portrait out of the back of a closet and sat with it in the middle of the night by themselves? You really shouldn't get divorced unless you really have to. It's hard on people. Everyone oh my god, I just gotta tell you everything so everybody could figure out what's wrong with them while they're listening to a big Sears portrait in a frame. My mom just stuck it behind a bunch of coats. And I would get up in the middle of the night and put it on the sofa and sit next to it when I was like 13 years old. Oh, my God. All right, I'm fine.

Erika Forsyth, MFT, LMFT 39:18 Wow. All right. No, I'd like to send you some referrals.

Scott Benner 39:25 You just keep coming on the podcast, I think it'd be okay. If

Erika Forsyth, MFT, LMFT 39:31 it was you're doing all the work. You're that's how you're reflecting.

Scott Benner 39:36 I'm you know what's truthfully like, step out of this conversation for a second. I started doing this with you thinking that it would help other people. And then it quickly I was like, that's gonna help me too. But like, I really was. I can't believe I'm doing the same thing that I bust people's balls about all the time. him, I'm helping myself to help other people, but never helped myself to help myself. Like, right like, and I always say like, don't they always tell you like, how interesting is the I'm such an idiot. I always say to you like, how interesting is it that people will do better for their diabetes, if it's for a pregnancy? Or because they want to be around for a child or they just met a guy, they think they blah, blah, blah, blah, blah. Oh, how could they not have done that for a decade before? All they had to do was the right thing for themselves? And then I sit here and do the same goddamn thing.

Erika Forsyth, MFT, LMFT 40:31 We all do. It's human nature sometimes. Yeah.

Scott Benner 40:36 All right. All right. I feel so actually, I think I'm a little hungry.

Unknown Speaker 40:47 Go eat something.

Scott Benner 40:49 So anyway, like to flip back to the week OB for a second, the only way you really know you haven't eaten, is you get I get like a little like woozy. Almost like I'm like, like, it's my body going yeah, we do not have enough calories right now. But in the past that would come up as hunger in my stomach, like a like a literal rumbling in my stomach, which which does not happen anymore. And I don't understand the hippocampus. Exactly, and what it does, but whatever's in that GLP one, like it just like, it is not functioning that way. It is not telling me like giving you the cues. Yeah, like dude, go eat. Like, I don't, I don't get that at all anymore. It's really something else. I used to do this thing. When I when I was worried about food. Like if I thought like, I guess this was an exercise about, about, like, trying to have self control. But I would like take, like, I don't know, like three minutes with me on a long car ride. And, and be like, don't eat those, like all at once. Because I am totally a person of eat the first meant that I'm definitely gonna eat the other two, and then they're gonna be gone, right? So I would bring them along with me and be like, don't eat them. And I would inevitably fail at that. Like, I was just like, I'd be like, I'll have one now and then one on the return trip. But then I'd have the one now in a bag. Oh, snap, let's just have the other one now. And I tried that the other day, too. And that was so easy to do. Like, just because, like, I just looked at them. Like, I don't really care about this. My wife's describing that, um, food is starting to taste different to her. Like not as appealing. Like still, like not not wrong. Like it's still taste good. Like it's supposed to taste but it's not hitting. Yeah, you know, by a friend of mine used to say the Kelly has a food face. They'd say like Kelly eats, she's never looked so happy, as good as was when that's happening. And that is. So I'm also trying to understand this because she started this after me. And her impact was slower. It probably because I didn't have as many issues with it to begin with. Like, it hit me pretty immediately. She's just starting to come into some of these feelings. And I wanted to try to understand them before she got involved in them because I think her path through them might be more difficult than mine. So, okay. Okay,

Erika Forsyth, MFT, LMFT 43:18 is this this interesting? This is

Scott Benner 43:20 the secret of your job? Do you really not talk? Do you just just say, Oh, my God, that's insightful. Scott about that. Tell me more about that. Feel like me?

Erika Forsyth, MFT, LMFT 43:35 Well, hopefully I do more. But I think you are you're really, you're able to unpack things that maybe sometimes I would need to add or ask different questions to help people get to where you got yourself.

Scott Benner 43:50 Yeah, no, I use you for cues. Like I look up to see how I'm doing. And I'm like, like, she doesn't want to say anything right now. Like I should keep saying what I'm saying. Like, that's how it like occurs to me like you make me want to keep saying what I'm saying. So it's an amazing skill, actually. All right, I'm just saying You're very welcome. I'm just gonna try to shift gears here for a second Erica force life.com. You can see people virtually in California where else?

Erika Forsyth, MFT, LMFT 44:16 Florida, Oregon and Utah. Okay.

Scott Benner 44:20 Erica Forsyth back calm. Thanks. Yeah, thank you very much. I want to thank you for listening. I want to thank Erica for listening. And I want to thank us med for providing Arden with her Dexcom and her arm the pods us med.com forward slash juice box or call 888-721-1514 If you're looking for community around your diabetes, check out the Juicebox Podcast on Facebook is Juicebox Podcast. type one diabetes a private group on Facebook with 40 1000 members, type one's type twos Lada gestational doesn't matter to me what you eat, what kind of diabetes you have. You're welcome in my absolutely free, private group. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. If you're enjoying the show, please subscribe or follow in an audio app like Apple podcasts, Spotify, and all the others. And of course, tell someone else about the program help it grow.

#918 We're Not Gonna Take It

Christina's daughter has type 1 diabetes and experienced bullying about her type 1.

+ Click for EPISODE TRANSCRIPT

Scott Benner 00:00 Hello friends, and welcome to episode 918 of the Juicebox Podcast here's a little behind the scenes on the podcast for you. This episode has been recorded recently it wasn't supposed to go up for months. In fact, it was slated to go up a few weeks before school started back up. But I saw a post online today. That is this exact same problem. And I thought, God, how many kids are going through this. So I just wanted to get this up. Now. This episode is with Christina, her daughter has type one diabetes, she's about 11 years old. And she experienced some comments from schoolchildren that really led to the regression of her diabetes and Christina and I talked about how to handle that today. I hope you enjoy it. While you're listening. Please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your healthcare plan, or becoming bold with insulin. If you'd like to support the podcast while getting great sheets, towels and clothing, use the offer code juice box at cozy earth.com to save 35% on your entire order. Better help.com forward slash juice box will save you 10% On your first month of therapy and athletic greens.com forward slash juice box we get you five free travel packs and a year of free vitamin D with your first order. This episode of The Juicebox Podcast is sponsored by the blood glucose meter that my daughter has been using for years. And this is no secret. It's my favorite one that I've ever used. The contour next gen blood glucose meter contour next.com forward slash juicebox. Check out the contour next gen the Contour Next One, the full line of meters. Fantastic website. I know it's hard to believe there's a great website that's about meters. But this one's got a ton of information on it. Contour next one.com forward slash juicebox links in the show notes and links at juicebox podcast.com To contour decks comm I'm the pod us man touched by type one better help all of the sponsors. When you click on the links, you're supporting the podcast.

Christina 02:21 My name is Christina, and I live in California. And I have three kids, a 11 year old she is my type one. And then I have a nine year old who's also a girl and a four year old who is are a little boy

Scott Benner 02:40 11 Nine 411 Nine for women. 944 is the youngest is a boy the other two are girls, and the 11 year old has type one. I got it. Okay, how old was your daughter when she was diagnosed?

Christina 02:57 It was actually she's sort of a newer one. It was in 2021 in December. So you know, we got the we got COVID at Thanksgiving, and came home and we all were just Well actually not all of us. Three of us. Husband, me and our oldest. We had COVID and it's kind of the same story, you know, somebody gets a virus. And then she we all have different symptoms. And she kind of just slept. You know, she was sleeping eating. And I just thought that's how it hit her. Yeah. And then she started not eating very much. And then I got to the point where she wasn't eating at all. And then I got to the point where she couldn't keep anything down. So it and then she you know, she did the chug the water in the middle of the night thing because she wasn't doing that before. She just always as a kid drink a lot of water. So I didn't have that sign ever before. And so I was just thinking, You know what, she's really dehydrated, she's probably going to be admitted. So I'm just going to take her in the ER, at our Children's Hospital. And then took her in and the nurse was was kind of like what she hasn't eaten since Wednesday really and it was a Friday. And so she said let's just take your blood sugar and it was 491 and she right away was in this is like in the waiting room where everybody's sitting and right away. She goes, Yeah, I I think does she have type one? And I said no. Is she said, I think we have like a new diagnosis. And I said okay, and so that from there I told my sister is a nurse. So I told her and she's like, Yeah, she's probably in DKA and You know, they, they took us back really fast. And we were in the hospital for like, almost five days. And which I'm actually thankful for, because a lot of times people, you know, get diagnosed and then sent home two hours later, but I actually got to, you know, get bootcamp and ask them how to do things and, and I didn't feel nervous going home. So that's, I'm, I'm thankful she was in DK even though it was scary. But I actually was able to, like, really know what I was doing.

Scott Benner 05:34 Yeah. Well, that's excellent. Yeah, it really interesting to the nurse picked it up so quickly, even in the waiting room. That's great. Well,

Christina 05:43 you know, a week before, the the nurse that we had at nighttime that night, he said, we had a boy in here almost the same age, same story, like, came in with COVID. And he was in DK. Then I think, you know, maybe she was the nurse that saw him. I don't know. But she like right away picked it up. Yeah.

Scott Benner 06:07 Wow. And that's something that's great. I mean, it's, it's nice to hear somebody know what they're doing. So Excellent. Any other type one in your family?

Christina 06:17 My great grandma. So my grandpa's mom when he was 22. He ended up like not going to college because he needed to stay home. And when I was a kid, I didn't know what she was sick with. But she just said she was sick. So he stayed and helped take care of her. And then when he was 22, she passed away. Because back then, you know, it was back in the 1800s when she was diagnosed. Yeah, you know, she, so they didn't really have anything.

Scott Benner 06:48 Sure. So she got she got type one. And then they probably did that, like real restrictive diet high exercise, like that kind of stuff to try to keep her Oh, yeah, yeah. Oh, yeah. Yeah. Well, that's something and that story got passed through your family. Yeah, that's interesting. It really is. And then, but that's a number of generations ago. So not something you're thinking about?

Christina 07:14 Oh, no, no, I actually, when we are at because I grew up in Idaho. So we were all for Thanksgiving in Idaho. And we're sitting there and I was talking with my mom and my sister, looking at Charlie and thinking like, Oh, I've been like really thinking maybe it's an age thing. Maybe she's just not eating at lunch. And she's, you know, girls go through stuff. And so she was getting really skinny. But I thought maybe she but then I when I would see her she would eat like tons tons and tons of food. And so then it was like maybe a growth spurt. But at Thanksgiving, I was thinking like, something wrong, like the C word. You know, like maybe cancer and I and I said it to my sister, and my mom. And my mom was like, What is she eating? And my sister goes, Mom, she just ate four pieces of pizza and a big bowl of Turkey noodle soup. She she's not not eating. So if I had to say any sign that was the sign for me knowing something was wrong, but it just was so hard to tell because she's she's 11 and she's like, five, six. really tall. Oh, so I just didn't like

Scott Benner 08:38 cleaning out like, yeah, the Grossberg

Christina 08:41 maybe it's a Grossberg because she's like, just 10 feet. back then. It was like size nine. But

Scott Benner 08:49 Christine I've been doing this for so long. I've been doing this for so long. That might take away from your story is that Turkey noodle soup with sound good for lunch lovely idea. Yeah.

Christina 09:04 Just get get a turkey. It's better if you cook the turkey and then use you know, the the stock from that. And then the actual Turkey. I like dark meat. But the the white meats okay to?

Scott Benner 09:20 I don't know, I'm starting to think about it. Then I was like, What's wrong with this? She's telling me this story about her daughter's like super thin. And she's like, maybe she has cancer. Could be I don't know. And I'm like, boy, that turkey soup. Sounds good. Yeah, I've heard too many of these stories is what I just realized. Okay, so

Christina 09:42 the same story, you know? Yeah.

Scott Benner 09:44 Well, it's what happens next. It's usually interesting. So I guess my first question is, was your daughter was like, maybe 10 when she was diagnosed? Yeah, yeah. How did she deal with it?

Christina 09:58 Um, you know, in the bigger anything, she kind of was like, let's do this. Like she, she was at our hospital they do the walk before you run thing. Because right now she's like on a pump that CGM. But in the beginning they had us do all the, you know, MDI, which I'm thankful for again, because so many times we, like, just last week her had fell off at volleyball practice. And we are going through a drive there. And she's like, Oh, really? Yeah, I forgot the law. He kind of, you know, started to get like upset like, Oh, I'm, I'm, I'm not going to eat till I get home. And I said, no, like, if you're willing to give yourself a shot, you're fine. Because I carry you know, all the stuff with me. So it's in that situation. Nobody was freaking out, except for her thinking she couldn't eat until she got home. So it's, I'm thankful for for that. Yeah. But I kind of forgot what we were talking about. Because I

Scott Benner 11:07 know how she dealt with it. You said she was doing well. Yeah. You made it sound like she came out of the gate strong. But then.

Christina 11:15 Yeah, no, she came out strong. What we're running into now is burnout and peers and that type of stuff. She dealt with it fine. I'm just seeing now, it catching up. You know, maybe that Yeah,

Scott Benner 11:31 tell me tell me about that. What's happening there?

Christina 11:35 Oh, you know, and this is actually gonna go into sort of the, you know, the topic that I brought up that we could talk about, but she was completely by doing it in front of friends. And then you know, she hits sixth grade, a boy makes a comment. And she stops eating or not Pre-Bolus thing at school. Because she doesn't want to do it in front of friends, or people she's comfortable with. So it's kind of we're kind of running into that she'll do it in front of her friend show. And it's really now it kind of simply, you know, you just take out your phone, which people think is a phone and then type in numbers, and you're fine. But she is just so like, Oh, they're going to know, now and doesn't even want to pull it out? Because she doesn't want the question or cuz you know,

Scott Benner 12:36 the comments. It was the boy.

Christina 12:38 Yeah, it was the boy, the boy made some silly comments. And now she's like, Oh, I don't want to have diabetes anymore. I don't want people to know, I don't want people to talk about it. It was just that one comment. You know, that's, I mean, yeah. And, and I've talked with her teacher about it, who has been a sixth grade teacher for, you know, almost 30 years. And she said, The bad part is like, she doesn't surprise her. She sees so like kids will wear sweatshirts in 90 degree weather. Because they don't want certain parts of their body to show and they're sweating and their faces are red, that they will not take that sweatshirt off. Just because of Pierce. Yeah, that's she said yeah. It's just unfortunate that it's, you know, a medical thing that she that is affecting her.

Scott Benner 13:32 Yeah. Christina before we move forward. I'm having trouble your voice is fading out a lot with those. Oh god. Do you have wired headphones by any chance? Yeah,

Unknown Speaker 13:42 I do. called on

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Christina 16:38 Okay, here we go. So much better. Is this better? Oh, yes.

Scott Benner 16:41 One. Oh, good. Thank you. This is a it shouldn't be a lesson to all of you. Who's got rid of your home phones. They sounded so much better. Just $12 a month at this point. I have a home phone with just act old with me and make your stuff sound better. Okay. Wow. So did your daughter ever talk to you about the boy? Or did you have to pry it out of her? Did she come tell you?

Christina 17:11 Oh, no. So it you know, I picked her up from school. And she just was like, raging, you know, anything that anybody said was annoying. And we're on our way to volleyball and nothing's working. She can't find anything. And it really was getting to the point where I was like, like, am I gonna yell at her? Start saying bad words. I don't know. Oh, so

Scott Benner 17:40 you so well. So what's your impression when she's complaining? Because what I hear like, you know, obviously not in your house and listening to the conversation is this boy said something to her, sent her down a rabbit hole about this. And now she's very, very sensitive to everything that's happening are saying, but how does it oh, how is it impacting you, though?

Christina 18:02 Oh, no. So. So how was it? What it what it actually did? Was? And do you want me to answer how it's impacting us? Or do you want me to tell you how it came out?

Scott Benner 18:15 No, Christina do the whole thing. We got time. Go ahead.

Christina 18:18 Okay, so you know, it. I'm trying to like, so another thing that I do is like, I look at what her blood sugar is, like, is she just freaking out right now because she has high blood sugar. Because that's usually what happens is when she's acting that way, we've got like, we're rising up. But it wasn't that and so finally I just say Is something going on. Like, we gotta like, I always do this, like, Let's reset. Yeah, cuz that just stops a whole conversation. Like what's going on? And she's like, well, and I'm not gonna say the boy's name. said to me that I can't eat this candy bar, because I have diabetes, and I ate too much sugar. And that's why. And I, I got like, I in that moment, you know, things have been building up. And I just don't that mother.

Unknown Speaker 19:27 Yeah, yeah.

Christina 19:31 Bored kid. The positive thing is like, I don't normally like talk like this. So when I do say something like that, the kids know like, I'm either serious, or something's going on. And they just started laughing. So it was good, because they were like, You just said

Scott Benner 19:52 you broke the tension. Yeah,

Christina 19:54 yeah, broke the tension. And I was kind of like, I know I said that. I didn't mean this. say that and he's not really that. But like, he's just uneducated. Like, he has no idea what he's talking about. And I said, Do you want me to say something? Do you want me to, you know, go because we can't have this keep going on. Right? Like, we need to, like, do some education to this boy. And she's like, No, no, I don't want to get in trouble. I don't want that. So what I, what I eventually do, like I said, it, we literally had just pulled up to volleyball, she went off to volleyball, and then gets back in the car. And you know, it's like, doesn't bother her anymore, because she got some of her frustrations out at volleyball. And I'm still bothered about it. So the next day, I just picked her up from school. And I said, Hey, you know, I'm gonna just run in really quick. And she's like, No, Mom, no, no. And I said, I'm not going to, like do anything, I'm just going to figure out how to how to handle this situation. So I just went in. And luckily, the principal was sitting right there in the office. And, and coincidentally, that kid was sitting in a room in the office. And this, you know, this kid is, is the kid that everybody is always like, Oh, it was this kid, he did it. Right. He said that. So he sort of has a reputation. Like he was in the office for being in trouble most likely, when I got there. So I just said to the principal, look, a situation happened. And he's like, Well, what was it? And I said, you know, adults make an educated by the comments. So I know like that, that's where this is coming from. The kids said this. And I told Charlie, that I just was gonna mention it, she doesn't want him getting in trouble. But if it happens, again, how do we go forward and handle it? And so that's kind of just what we did. And I'm pretty sure the kid heard the entire conversation. And so that was good. You know, I did, he kind of got talked to, but not really. I was able to say what I wanted to say to get it off my chest. Yeah. And, and then it was just, you know, put on notice,

Scott Benner 22:36 well, you're very, very adult and immature. Look at you. When I'm, when my brother was in high school. I was kind of my I was kind of my brother's de facto parent. So my brother is like a, I don't know, a junior in high school, which only makes me like, out of high school for like three years. And my brother gets into a fight with this other boy, and I get called to the school, my mom gets called the school, but my mom doesn't have a car. She's like, going, I'm going. So I go to the school. And I go into the office, I'm like, what happened? He goes, that kid is crazy. He's like, I don't know what happened. He just like, flew off the handle. I'm like, Look at me. I'm like, I don't care what you did. But you need to tell me so I know how to like, you know how to handle this. And he goes, he goes, it really wasn't me. Like he just like, flipped. So the boys were sort of in the outer office sitting there. And the, the principal starts talking to me and the boy's father. And you know, try to imagine you're the boy's father, you're probably in your 40s. Like this 22 year old guy shows up like to speak for person, you also have to be like, it's gotta be in just incensing. And I purposefully spoke in a way that would like the boy up, and then he flipped out and went after everybody. And I backed up and backed up. And I pointed to him, and I went, Hmm, seems like we know what happened. And just like that, my brother got released, and I walked outside. I was like, let me know if you need anything else. And I went back to work. But I, oh, my god, I just I looking back, it's funny, but you know, it wasn't really like I just, I saw the kid was unbalanced. And I just sort of said the things that I thought poke the bear, I poked it, I poked him a little bit, and he flipped out.

Christina 24:20 And I was like, I'm just so curious as to what you said, though. Oh, I don't remember

Scott Benner 24:24 so long ago. I just remember doing it. I just remember. I remember looking at the kid assessing him as being unstable, and thinking I could probably get him to flip out. That's all you were very much more an adult. Obviously. By the way, you that's why you shouldn't put 22 year olds in charge of like, adult problems. But yeah,

Christina 24:44 that's that's the whole like, your frontal cortex has not developed. Yeah,

Scott Benner 24:49 no, no, I was all about like, how do I get my brother out of this? Like, I didn't even I didn't even care about a resolution. I was just I wanted the trouble to go away, but that's also a function of being really broke. Like that. There's always this fear that if something goes wrong, it's going to cost money, or somebody will have to take it. And you won't be okay. So you're always trying to like protect the, you have no money to speak up, but you're trying to protect it, basically. All right. It's how I always saw stuff like that. That's interesting. Yeah. Yeah. Well, you know, I my mom used to make cheese when my dad left my mom, she had her she got a job making $4 an hour maybe. And then, and by the time this story happens, I'm working. I make like, $5 an hour, and I'm doing like hard labor for $5 an hour. Oh, my God. Yeah. And so like, even just taking off a couple of hours to go to the school. Or like, like, in my mind, I'm like, Oh, God, what is this? Like? What if this is a fight? Like, what if this goes to court? We can't afford it. Like, you know, like, my mind, just kind of, like, ran through that. So I was, I was defending, you know, our bottom line? Which, right, you know, our total savings was, was $400. Probably so. Right. Anyway, the, but I liked the way you did it much better. I'm,

Christina 26:08 yeah. I have have been, you know, in a school office once or twice before?

Scott Benner 26:14 Yeah. Wasn't your first day? Yeah. So does this bring any comfort to your daughter? or No?

Christina 26:23 No. So that's the thing, we're still, you know, working on this, this. This, this behavior of hers now that? That so it's, it's formed a new behavior? This thing with this boy, now, it's kind of like, she doesn't want to have like, it's a major burnout. Yeah, okay. But on the highest level, because she's sort of, you know, not helping herself out at all. Because she will go to school, like, in the anytime she's with me, it's like, great, great charts, you know, great graphs. Were Pre-Bolus, seeing 20 minutes before, you know, doing all the stuff. But then the second, she leaves me, and there's peers around, especially, it's like, I don't have this anymore. And I'm just going to make up for it when I get home from school. Or if I go to the bathroom. And I remember all correct. Yeah, she really doesn't leave. So. So that's actually currently an active thing we're working on. And, you know, I've tried the, like, rewarding her, you know, this, this thing? Is it this thing that I'm, I've been doing with my middle one, for years and years and years. It's, it's ABA, it's applied behavior analysis, where we, we see a behavior, we understand the behavior, and then we try to modify it, because my middle one is actually on the spectrum. So we've been doing ABA with her since she was three years old. Okay, so now I'm taking the skills that I learned from that, and trying to apply it to this type one daughter of mine.

Scott Benner 28:36 So it gets helping,

Christina 28:38 oh, there, there's actually a lot of different things and, you know, coping skills and tools that I've learned with doing because we've had other situations, you know, like, where we've had to address it. This is kind of the biggest one so far in our type one journey. Yeah.

Scott Benner 28:59 It's very serious and sad. You know, like, it could really like because she's making decisions right now. That are that go against her health, in order to make other people happy, who she will one day learn are not important people to her at all. And that's exactly Yeah, it sucks. I'll tell you like, it doesn't strike me as completely healthy. But I think I'd go with a us against them tactic. I think I'd be like, listen, we don't care about people who don't care about us. And if this person doesn't care about your health, then we can't care about what they think. Like, that's kind of the vibe like, I don't know, like, do you ever notice that? Are you married? Christina?

Christina 29:48 That's actually a whole like three hour conversation. But no, um, yes, but no, we're getting married. I've actually just recently filed.

Scott Benner 29:58 Well, have you ever been in this? might even be more poignant you've ever been in a relationship before? Do you ever notice that you'd never get along better than when you have a common enemy?

Christina 30:10 You know what? That? That's pretty funny. I never thought of it. But

Scott Benner 30:15 I think of it all the time. If my wife is pissed at somebody, I immediately jump on board. I'm like, Yeah, them because? Because then she's like, he's on my team. I'm like, God, damn right. I am. And then

Christina 30:29 well, then you just need to find more enemies. And you'll have a great marriage.

Scott Benner 30:32 Right? Listen, it's a it's a reasonable tactic. But no, but being serious, like, by the way, I don't know that I wasn't being serious. But being serious. The like, when you have a common foe, you feel more aligned. And the way I've said this on the podcast before, I'm happy to say it again to you, because I'm sure everybody hasn't heard every word. But when I caught my little brother smoking, what I said to him was, somewhere in a boardroom, there are 10 Very rich people laughing that you're buying their cigarettes. Why? Why are you doing that for them? Right, like, like, they're like, Haha, these kids out there buying cigarettes, and I own a speedboat. And I have three mistresses and a Lamborghini and my wife and a mansion. And they're going to die. So I can pay for all this. Like, why would you let that happen? And and I think I have a very similar feeling about this. Like what I said earlier, I really believe in like, I'm not on the side of people who aren't on my side. So if you're doing something that is actively causing my health to deteriorate, well, you're not somebody I care about. Like, I can't possibly, why would I listen to you, you don't care about me. And I don't know that if she's old enough for that or not. But I mean, it's a

Christina 31:58 because that is so opposite of, of how I would actually approach it,

Scott Benner 32:06 I know, it's my brother in law, and then

Christina 32:08 invite it and anything like I in life for me, too, I wouldn't approach it that way. And turn and I have completely different personalities she likes, maybe you're onto something there. Because I was gonna go into like, Well, my next plan is to do with doing what I did with my middle one, when we have this certain thing that we want them to do like this good behavior, which would be in this case, Pre-Bolus thing. We were like, do this. It's called a social story. So we would sit down, and we would talk about and kind of at her age, because she's older, I kind of more do it in a journalistic type of way, where we would sit down, and I could write in like, this is a situation that happened. This is now what's happening. This is how this would be a better choice to do. Like, when we're at school, and we're embarrassed that our friends are around. What are some ways that we could like not be embarrassed? And you know, maybe your thing is like, you know what? It doesn't matter. It doesn't matter what they think about me, because I don't really care about am I gonna be friends with them? No, I don't know. Right? Maybe I have. It doesn't matter.

Scott Benner 33:42 Christina I have a comparison right now. I don't know that I can make but I hold on. So first of all, why did I come to this? Because when we first got on, I wrote down Christina, California as like a possible title for your episode. And I know you live somewhere where people are really like tend to be thought shallow. Well, but but like hippie dippie is what I was going Oh, yeah. And not to say that what you're doing with your your other child is and I can I'm gonna sound all over the place for a second. I love what you're doing with your other child. And I love what you tried with this kid. What it ignores is the nature of people and that there is somebody else in this equation that you're not in control of. You're not parenting the boy or the other people right? Because now everybody is the boy to her. Now she's 100% He believes everyone is looking at her like that when the truth is almost nobody gives a shit about her. Like nobody's thinking about her. That's the thing that kids miss. Right? Right. Like that's why

Christina 34:39 you're worrying about if they smell or not. Yeah, well.

Unknown Speaker 34:43 Oh my god when the internet got bigger, and I was like, and kids were like they're bullying me I'm like online like that. They're not there to like turn like you people needed to get bullied in the 70s like we're a bully held me under the water and was like you're gonna die. I was being bullied it and like, like, in a way that like could kill me in the moment. And you could shut your phone off and never hear from these people. And it's a hard lesson. And I know it's harder when you're a kid. But like, like, I'm a person who puts my voice out into the world, there are plenty of people who don't like me. And some of them make effort to make sure that I know it. But you know what I do? I ignore what I just don't listen to them. And that, you know, you know what, then they don't exist. That's it. There's billions of people on the planet, I'm aware of about 45 of them in person. Everyone else doesn't really exist unless you let them. And I don't say you should. Like I'm not saying like, hold yourself up and don't meet people. I'm saying be selective about who you let into your life. And if right, and she has to realize, first of all, the hardest thing to get is that boy probably thinks she's cute. And you know what I mean? Like, that's the part you lose is that like, he's like, he said, I couldn't eat this. Bah, bah, bah, bah. I used to kick girls in the hallway. You know which ones Christina?

Christina 36:09 The party. They're really.

Scott Benner 36:12 Like, once I found attractive, I don't know why. Like, I can't explain to you why an eight year old boy, a 10 year old boy would do something like that. It's stupid. I get it. But it's kind of how people's minds work. So

Christina 36:24 and that's what I said to her, too. I said, you know, he's probably thinking you're cute, like trying to make light. And she's like, Mom, no, that's so gross.

Scott Benner 36:35 Well, yeah, she's not ready for that idea. Yet. By the way, I wanted to be clear about kicking. I don't mean like full on, like curb stomping. I mean, like, just reaching people who are in front of you in line, you just kind of like messing with them like to get their attention because you want to be involved with them.

Christina 36:49 Yeah, yeah. Well, I mean, it's happened to to a lot of us, right? It happened to me when I was eight years old. I just liked it, though.

Scott Benner 36:58 Oh, my God, Christina. No, I would kick them back, get 1000 people together and ask them to tell their story about how they got together with their significant other and it's going to start off with I thought she was blank. I thought he was an idiot. Like, blah, blah, blah, then we just turned out to be like, like, it just always goes like that. It's just not going to happen to you when you're 10. That's all Yeah, yeah. But my point is, is that I think what she needs is agency. I think she needs power. I think she needs the confidence of, I'm just gonna say a lady in a top that doesn't fit her. She just needs that, like, This is who I am. And the rest of you. I don't give a shit. Like, like, in a nicer way, because she's 11. Like, we have to nice that down somehow and fit it well.

Christina 37:45 And I think she would like to be able to say that to you. Like that's her personality. Yeah. So maybe I'm just like, you know,

Scott Benner 37:53 you think you're holding her back with your nice stuff. Yeah.

Christina 37:55 With my with my hippie dippie ways, right?

Scott Benner 38:00 What are you trying to get the title off of Christina, California. Very good. Nice to try. Always not bad.

Christina 38:08 I mean, doesn't send change over here.

Scott Benner 38:10 It works when it works. But it works when the person on the other side is thoughtful understanding, willing to listen, emotionally mature enough to go along with that ride for you. And the truth is, she's not emotionally mature enough to go on that ride yet, like you're, you're painting a picture of for her of the way things should be. And I don't disagree with it. But it's not her reality. And she can't even put herself in it because she probably looks at kids and thinks she probably has thoughts like that about other kids too. So she's Oh, yeah. So she's like, if I'm thinking this way? Well, they definitely think this about me, I'll tell you that, um, I remember very vividly after a day of baseball, my son and I went to this diner. So he was playing baseball in New Jersey. And we were very close to where Kevin Smith comic bookstore was. And I said, Let's go there. And then we'll have lunch. There's a diner. I know, that's up the street. And so we did that. But because like it was kind of like a cultural center because Kevin Smith was very famous at the time and he had this little comic bookstore. There was really nowhere to eat. So we went into this diner, it was packed. We waited our turn, my son's at his baseball stuff. I mean, it's what he lives in. You know, he's comfortable. And the lady seats us. So it's a diner, whether booze or booze, booze, booze, booze. Booth booth. It's multiple booth. Yes, good. Booth. Okay, that sounds wrong. But there were a lot of I can't do it. There are a lot of those ways of seating around the walls, right like down the walls. But in the middle of the room. There were tables. And that's all that was left. And we got seated at a table that base III was surrounded by three walls of people sitting in booth. And we weren't there very long. And I don't think my son was maybe probably around your daughter's age or maybe a year or so older. And I looked up at him and I said, Hey, are you okay? And he was very uncomfortable. Oh, and I said, What's wrong? And he felt like, everyone was looking at him. Oh, gosh, because he was centerstage. You know? And, and we talked about it. And I said, I understand you feel that way. I said, but I want you to really listen to me for a second, like, look me in the face. I said, describe the other people around us. And he starts to look around with no, don't look at them. Describe them to me. And he goes, I don't know, I haven't been looking at them. And I said, yeah, they haven't been looking at you either. And I and I said, and this is a hard lesson at a at a at a young age. But nobody cares about you. Nobody, these people are strangers. They're here eating. They don't have an opinion about you. I'm like, do you have an opinion about them? And he said, No. And I'm like, and they don't have one about you. Nobody sees you. Not that you're invisible, or that you're not important. You're very important to me. You're very important to yourself. But these people are strangers. And they don't. They don't care. Like maybe one of them's looked up at you and thought, oh, that kid just came from baseball. That's the my son used to play baseball, then like, but that's it. Like, if you think someone's looking at you right now going that kid looks odd or strange. I wonder if he got a hit today? Like, are all the things that you're concerned about? I promise you, they don't care. And it was comforting to him. It was honest. You know, but what

Christina 41:47 what gave you like, I would have never thought to say that, you know, look at all these people, or all these people around you describe them?

Scott Benner 41:58 Yeah, well, I just I was trying to put into his head that they don't, they're not looking at him. So I proved I proved it to him by by coming by telling him like he didn't even know what everybody else. You don't know what everybody else looks like. They don't know what you look like. They're not paying attention to you. They're talking at their table just the way you and I are talking right now. We don't know what they're talking about. And I think I said like, what do you think they're talking about? And he goes, I don't know. And I was like, Yeah, that's it. Like, you know, people imagine things all the time. And I very recently was recording with a nine year old girl who has diabetes. And I have to admit her parents like tricked me into it. I totally thought I was talking to the mom and I was talking. They didn't probably Oh my gosh. So I get a record early in the morning. And there's like, hello. And I'm like, wait a minute, what is happening? Like, like, you know, right, I figured out and listen, the kid was terrific. And she's still nine, she was limited in what she could talk about. So we started we started like, she lives in Canada. So I made it, but she didn't understand my sarcasm. So it was just terrific. Because I basically just made fun of Canada the whole time. Like we got into these conversations where I was like, Hey, where are you live? Like, that's where Santa lives, right? And she goes, No. And I'm like, wait, well, where does Santa doesn't live in Canada? And she goes, No, like, we're not gonna, we're just gonna live she was the North Pole on like, wait, the north poles, not Canada. And she's like, No, we're going back and forth. And at one point, at one point, I said something like, how do you get to school like in a sled? Or like, how do you like a four wheeler? She doesn't have a car and like, there's no cars in Canada? And she was yes, there are and I'm like, I'm like, there can't be. And she goes, there's cars in America. And I was like, Have you ever been to America? And she goes, No. And I'm like, Well, how do you know? And she goes, Well, there are there are cars in Canada. And I said, Listen, are you in a room with a door? And she goes, Yes. And I said, on the other side of the door, the side of the door, you can't see. Is there a clown standing there right now? And she goes, she goes, No. And I went, are you sure? She goes? I guess not. Now, I was like,

Christina 44:07 Are you just trying to scare a nine year old I was

Scott Benner 44:09 trying to be funny on the podcast. And I was trying to teach the I was trying to teach the kid Critical Thinking I said, yeah, there's probably not a clown on the other side is not a clown, but you cannot definitively say that it's not there. And I said, and you're right. There are probably cars in America, but you've never been here. So you don't know for sure. And she's like, okay, and like she got it. And I just, I just think that we do a disservice to kids sometimes by not telling them the truth about the world. It's almost like, you know, when people say like, oh, my, my kid cursed. I was so embarrassed. Christina Do you know a human being that doesn't curse?

Christina 44:49 Um, know. Yeah. And the

Scott Benner 44:51 ones that don't do really trust them. You know, I'm sorry. Right? Right. So like my point is, is that everybody curses and we act like they don't. And then these kids walk around with this unrealistic expectation put on them. And I wonder if telling your daughter be nice to people who are mean to you? Like, yes, you should be nice to them. But I think there are caveats to that. I think he doesn't understand. And maybe it's because he likes you. Or maybe it's because he's an idiot. Or maybe it's because of a million things we're not going to understand. But it's not important. We don't care about his opinion. That's what's important. us as a family, we care about people who want you to be healthy, and people who don't want you to be healthy. Not only do we not care about them, we don't want them, we don't want them to have influence over us, because the most important thing is you and your health. And that's it. That's what I care about. So we're going to do we're going to Bolus are for our foods, and we are going to correct if our blood sugar gets high, and we don't care who sees because, you know, the truth is, the people who love you won't care. Tell her that my daughter has 56789 amazing friends in the world who would not care at all about her diabetes, they wouldn't say anything about it or make her feel bad about it. They wouldn't make fun of her. But that's because my daughter has called those people together. Right? And, and you just you can't expect everybody to to be that nice. I don't know.

Christina 46:28 And anyway, maybe the the direction that I always go is like, oh, you know, you don't know. Maybe he's having a bad day. Maybe he thinks you're cute, you know, making excuses. We're really maybe that's not even helping her at all. Because I'm not really empathizing with her.

Scott Benner 46:49 Yeah, you're not hearing her concern? Because you're saying like, here's what you're saying, Mom, somebody punched me in the face today. And you said maybe he's having a bad day. I don't care if he's even worse. Yeah, right. Well, I don't care if he's having a bad day can't punch me. Like, like, there has to be walls. There has to be lines. There has to be you don't We don't bend from this. us as a family. Here's our line. We don't go past this one. You don't get to make my daughter unhealthy. We hid we we do not stand for that. Anybody who would make that assertion? To me mean, I think and listen, I know the the concern is you don't want to make your kids like the cynical little who are running around like saying like, everybody sucks. And you don't know how people are like, like you. You have to explain it to them. Like, it's not everybody. It's not people. It's not society, there are a ton of great people in the world, and you're gonna meet a lot of them. He's not one of them. Or he's not one of them right now, he might be one day, but he's just not right now. And the problem is, is that we don't have the luxury of waiting for him to figure out how to be decent, because your health is injured every time we don't use your insulin. Like to me that's the message. I don't know. Like,

Christina 48:07 you know, I'm really trying to find so with her. She's kind of my, maybe my toughest one has always been she's the firstborn. Like all of those firstborn things. She does. You know, she's always right. Well, she thinks she is she, I go to all these like, like chaperone things, you know. And so I see how she interacts with peers. Yeah, and she really isn't insecure. It really just comes to diabetes. Because, like, there we were, we were at this. And where I'm going with this is like, I don't think she's gonna mind. If I tell her, you know what, and all of those people that make you embarrass you, because she is the type of kid we're at this camp. And at this outdoor camp, and there is this camp leader, that kind of a lot of the kids didn't really like, because she was bossy and not very nice. And she's sitting there doing a stem activity with some of her peer, you know, classmates. And they're doing it. And this one girl just keeps telling her what to do. And she keeps telling the group what to do. And she goes, Oh, you sound like that girl. And I was like, totally. She's like, what she sounds like her she's bossing all of us around. And so she's not one to not say something, ya know, like when she feels like it, you

Scott Benner 49:48 should empower honestly but like don't turn it into like a but

Christina 49:54 so that's why I'm telling you that because, like sometimes I worry about that, because in that moment, she's not afraid to do that. But it's just where where do I get her to be that way about her diabetes? So

Scott Benner 50:09 you're I think you're overthinking it. Is she a good kid? Yeah, okay, well, what's, what's more likely than not taking care of her blood sugar is gonna cause her health concerns or that she's going to turn into an animal?

Christina 50:24 I think I'm overthinking it. In that moment, I would say like, Yeah, but, but but she could be if I if I tell her to go this route. So

Scott Benner 50:33 I'm gonna be honest with you, if it was 1978. And this was happening, and it happened to me. My father, or mother or your father or mother would have like gone to this person's house and said, Hey, your son said something to my daughter, tell him to apologize. And then you would have explained it to the parents, the parents would have whacked the kid on the side of the head said apologize to that girl. And then that would have been the right. And if it would have went the other way. My father would have reached through the door, grabbed his father banged his head off the door jamb, and then made the kid apologize. And I don't think any of that's right. But that is what would have happened back then. Right. And nobody sat around trying to pre plan people's thoughts. Like, like, I think, like, You're younger than me, right? How old are you?

Christina 51:20 I'm 38. Yeah,

Scott Benner 51:22 yeah, you're you're a generation or so behind me and parenting, like, I'm going to tell you the God's honest truth. You're not in charge of much as much of the direction of your children as you think you are. Right? Yeah. Like you're not going to be able to get her exactly to where you imagine her being. And the truth is that she's different than you. So even the roadmap, you're going to lay out as a good route. Basically, you're parenting your daughter the way you wish somebody would have parented you. I'm doing the same thing, by the way. Well, like but it's but mostly I'm not right. Mostly because, like it works better for Arden than it does for coal. Because coal is more like Kelly and Arden's more like me. So art in response to how I think, quicker. And Cole is more like, What are you talking about? But he's smart enough to listen, and he takes the cold, cold cherry picks from my parenting. He loves me, I watch him, listen to me. And he'll say, What Why did you? Why did you say that? And I'll tell them my thinking, and he'll go, okay, that makes sense. And then I'll see him adapt it, like to his personality. But I'll also say things where he'll be like, that doesn't make any sense to him, and he will just ignore me. Whereas everything I say to Arden makes sense. Because she and I are like, we're like the same person. So like, so I say some if I would just say, if I were to say him to my son, my son might be well gone. I don't know about that. Let me think it through or Arden would just be like, Yeah, let's roll that to be like, You know what I mean, and even now, she's getting older. She's like, I don't know if this old man knows what he's talking about. So just, you're not. You're so the I don't mean you, we all of us. I think we've made this assumption over the last couple of generations that we are somehow just 75,000 Great Decisions away from making a perfect child. And it's not gonna happen like that, like so I go, I go with, you know, have good intentions. Be a good person. Don't lie to people, if you can help it, treat people the way you want to be treated.

Christina 53:32 It's a basically a way you can help it. Yeah, well

Scott Benner 53:35 listen to me, you pull me over and say, Hey, why are you driving so fast? I am gonna start lying in circles, just so you know. Because I want to get out of a ticket. But, you know, if my wife asks me a hard question, I'm not gonna lie to her. And by the way, that's been told to me is not nice. I've had I've had people say to me, like, well just say what they want to hear. And I'm like, I find that insulting. Right? Like, so if I love you or care about you, I'm going to be very honest with you. If I don't care about you, I'd be happy to lie to you to make you happy. But I will I won't lie to my wife. Even if it would make even if it would make her day better. Like yeah, and there and I wrestle with that sometimes. Like I don't know if I'm doing the right thing. It's just it's the way it occurs to me. So anyway, and

Christina 54:30 what what even is the right thing, right? Yeah, that is her Yeah, I think we're doing the right thing.

Scott Benner 54:35 Yeah. But is her being happy the right thing? Or is or is her understanding the honesty of the moment the right thing?

Unknown Speaker 54:43 Hmm.

Christina 54:45 I think lying to make someone happy is a good in the moment thing, you know, things are great. And maybe it'll never catch up. Right? But if you continue to do little ones here and there, it's gonna catch up. And then in the long run, it's not better.

Scott Benner 55:09 I have. The other thing I find is that people are generally lying to themselves. And then they're asked, Oh, yeah, that's a big thing. And they're asking you to go along with a lie. And it's uncomfortable for them if you don't, so that's what I mean by you're lying to them to make them feel better. Right? And I, I'm not using my wife for any like, big reason other than we've just got a long history together and like, it's, you know, it's come up to where she's, you know, but I don't know if you're, if you're, if you're, if your friend is 300 pounds overweight and ordered two pizzas for themselves and said, It's healthy, right? cheeses, milk, and you go Yeah, absolutely. Hell yeah. Like, that's the situation where I'm like, if you really cared, wouldn't you go, Hey, like, no, yeah, like pizzas not healthy. You know, like, and I love you. And please don't eat two pizzas. Like, like, you know, and that's gonna go poorly. They're going to be upset by that. And, and then it's, so that's the question for me is like, do you what, what do you do in those situations? And I think it's, it's case by case and going back to your dorm. I've said this on the podcast for years, I've written about this, when I used to blog about it. I don't care about anything as much as I care about my daughter's health. So right, these, this conversation you and I are having is I would deal with this no differently than I dealt with a school that didn't want to do the right thing for her. A teacher that didn't want her to check her blood sugar, or anybody else who would stand in the way of my daughter having low stable blood sugars. Like, that's it like, I'm not, I don't have any. I don't have any ability to be humorous about that. Right? I just don't. And by the way, I can't wait for the kid at the high school up the street with a loud truck to graduate and get out of this town. Because every day at this time, he drives past my house and make noise. Just heard of my microphone. And I I'm gonna, I would pay him to drive down a different street if I could find him.

Christina 57:14 Because is it good music though?

Scott Benner 57:17 It's not the music. It's the truck. He's got. He's got these loud mufflers on it. And he always, by the way, if you were talking, I could just be quiet and then cut it out. But anyway, not the point. Yeah. So what are you going to do?

Christina 57:33 Um, I think I'm, you know, I'm going to use that approach. Let's see how it goes. You know,

Scott Benner 57:38 like, empower her make her Yeah, tell her there's nothing

Christina 57:41 wrong with that. And then if it doesn't work, I'm gonna go down my hippie dippie Wait, lane again, you know,

Scott Benner 57:45 you're not gonna get slapped. Get out of the kids, mom.

Christina 57:49 Well, I you know what, though, I have this, like, this is just me, I will get so mad and so frustrated. And I have so many drafts in my inbox that are to the school to different people that I'm just like, so mad about. And I'll write it up. And then I'll I'll even go as far as sending it to one of my sisters to proofread. And then, and then I'll let you know, kind of like, see what they say. They don't sleep on it. And then I won't send it. I'll be so fired up to send it and then I don't send it down. Definitely. It's just I'm definitely it's just something that I do for me to cope. Yeah, you know, maybe I just need to send an email.

Scott Benner 58:36 I don't I mean, I don't know in this in this exact situation. I don't know. I

Christina 58:40 wouldn't send an email. Yeah, yeah. But yeah, it was just, you know, yeah. No,

Scott Benner 58:45 I like It's like journaling. Yeah, yeah. No, I that's completely I think that's incredibly healthy. Like, is it going to go in your car and talk to yourself? I don't care what you do, just yet. Like, like, let it out. So it's gone. Yeah, but you're not gonna like meanwhile, like you can do with a 10 year old kid who says something stupid to another 10 year old kid. There's not much you're gonna do that. But I think I think the expectation that everyone's not always gonna be as kind as, as we hope to be for people. And you have to learn how to be like, resilient about that and but resilient, right? Resilient doesn't mean let someone shovel 10 pounds of your head and you walk around and smile. It means it means when you see them coming with the shovel, you walk away you don't you get away from it. You You know resiliency is almost a little bit about not being a victim. I think like you know what I mean? Because once somebody does something terrible to you, you've you're victimized at that point like it is happened to you right and then your what you're telling people is no matter how terrible this is, keep a stiff upper lip, which I mean, again, then that message is people are allowed to do terrible things to you but you're a good First and so you smile. And I don't? I don't think that's right. There's no right to me.

Christina 1:00:05 It's not right. And it I think it also is going to, you know, if we keep going the route of like, Oh, they're just an educated, like they just say even adults say silly things or stupid things or if we keep going around that route, it may becomes even more negative to her to have it. You know, yeah, because like she may even have resentment towards diabetes, because people say all the stupid stuff to her, and she doesn't stand up for herself.

Scott Benner 1:00:34 Yeah. And there's Pete, and you have to stand there and eat that sandwich over and over and over again, instead of like, oh, by the way, it's crazy as this sounds, I just put an episode up today about diabetes myths. And, you know, the first one we did is like, why people have diabetes, which is always like, you ate too much sugar. And it's there's a lot of like, personal stories and their listeners about like, things that were said to them by family members, and you know, onlookers and everything else. And like, the the explanation in that episode, is, is aimed at the people with type one, which is like, you know, yes, people are going to be ignorant, they're not going to understand some of them are just going to be stupid or bad communicators, some of them are going to be having their own pressures. And they're asking you questions, because they're scared for themselves, and you get a mask. But the end result is, you don't need to take that, like, like, you make a decision, you're either going to walk away, or you're going to educate, which is probably going to be a waste of your time. Or you or you have a stock answer in your pocket. And actually, somebody on the episode said, there's a link online, I forget what it was. But you can like hand somebody like a pre printed like PDF that has a link and says, Look, you're misinformed about diabetes, but if you want to learn more about it, go to this link, but you get away from them. Because you know, because it's not your problem to suffer other people's misunderstandings. You know, and I don't know, like, I just think, you know, I don't, I know, it sucks that your your kids see this one girl, and she seems bossy to everybody. But I bet you that I bet you that person doesn't feel like this ever. You know, you know? So? And could there be a better balance? Sure. But I'd prefer to be on the side where where I'm confident and protected. Then not feeling not confident. And, and like somebody's like, I'm now hiding who I am for somebody else. Right? I'm not into that at all. So anyway, I could. Yeah, yeah. That's what that's what it's called. Yeah, I don't know. That's, you know,

Christina 1:02:54 no, it's interesting, because for years, because this, we go to a private school. She has been with kids, since preschool, you know, now she's in sixth grade. So while we don't live in a small place, the school is kind of smaller, like, everybody knows each other. And everybody knows this kid. And for years, I've been telling her about this kid, like, you know what, because there was at one point where I heard them talk, you know, the best thing to do if you want to know about your kids, I think everybody has heard this thing, but like, just sit and drive them around and be quiet. And you can hear all kinds of stuff going on when they have friends in the car. But for years, this kid has been the topic of like, oh, you know, I've heard all of the misfortunes that have happened in his life. And they've talked about it at school, and then they talk about it in the car. And so I know I have a heart for this kid. Because maybe he's having a bad day. Yeah. But at some point, that's probably not I'm not doing a justice. She's not doing justice to him, if everybody just because he's from this. And this is why

Scott Benner 1:04:12 let me put it to you a different way and see how you feel.

Unknown Speaker 1:04:16 What if

Scott Benner 1:04:18 your daughter stops bolusing for her food, and four times a day, her blood sugar spikes up to 250? And when she's 26, she needs laser treatments to stop bleeding in her eyes. Do you care how that kid feels now?

Christina 1:04:32 Oh, no. Yeah, well, you know what's so crazy is because I listened to that episode with with the guy that had all the eye treatment. Okay. And I brought that up to her. I literally said to her, Listen, because I've done like, I'm not going to try and scare her about this. I'm not going to but finally I just got to the point where he said like, listen, I just listened to juice box and and there was this guy that had to do eye treatments for you yours because of not taking care of themselves and just being a kid, and not caring

Scott Benner 1:05:05 won't work, though she can't. Her brain can't fathom No, it can't. Yeah, by the way, so some adults brains can't fathom the future. So

Christina 1:05:13 no, I think I think you're right. And I,

Scott Benner 1:05:17 but that needs to be your motivation. I mean, like quiet right in your head, you don't need to be telling her about it, you need to be saying, This is what I'm fighting for. Like, I'm not, I'm not, I'm not just fighting for an 11 year old to feel comfortable at school. I'm fighting so that my 11 year old doesn't turn into a 26 year old who's a one C has been 12 for 10 years. Like that, right? That's what you're fighting against. You're fighting. You're right now your daughter is at a precipice, and you're trying to stop her from slipping down a slope, that she may slide down forever, nobody can stop her. Or by the time by the time she figures it out. She's so far down the slope, it's hard to climb back up again. And to me, that's what you're that's the bigger argument here is that I'm not I'm not so much defending today. I'm defending where today leads to. Right. That's, that's, that's how I think of it I guess.

Christina 1:06:11 Yeah. And that's that. I mean, how we always should, right.

Scott Benner 1:06:15 Christina, you're very agreeable. How did this what marriage not go? Well, I don't understand.

Christina 1:06:22 Oh, if you if you want to, if you want to, like another hour, we can we can split it up. And I can tell you the whole thing.

Scott Benner 1:06:34 No, it's your business. I was just I was just joking around. Yeah. But no, I was trying to say like, I was joking, but saying like, No, I know, it was I knew of you to come on. And here's something that was so like, opposite of what you were thinking. Because you have like a very thoughtful thing typed out here about all the like, wonderful pair. Yeah, no,

Christina 1:06:51 I haven't. I haven't all lined up to I have like, Oh, and this. Like, I have one page to explain to you what ABA is. I have another that compares how I use it with my daughter who's on the spectrum and with my daughter who has type one. And then I have like all these, it. You know what, though? This, this has been a great conversation. You know, it may have even been, may have even been good. Because I I was totally going in a different direction. As far as like, you know, schools ending, I'm just gonna get her into a great routine where she doesn't mind doing it. And I'm going to expose her to being a lot of friends and doing it in front of friends. You know, I had this whole like, plan for the summer.

Scott Benner 1:07:47 I don't think that's a bad plan. But you she used to be empowered. Yeah, but you know what I mean? But like,

Christina 1:07:52 when I'm not that's the thing. When I'm with her, it's great. And she's like all about it. We kind of team up, you know, right? Because she's still 11 Yeah, right. No, of course. I know when when we go to volleyball tournaments, because she she actually plays like, at a high level. Her team qualified for junior nationals. We're going to Minneapolis, we travel all over the country. And she's like, what are the best 11 year old

Scott Benner 1:08:24 proud country proud of herself about that? Like, and yeah, it feels very confident. That's the confidence you want to give her about her health. And what it takes to be healthy. Right? Yeah, that's all. Yeah, that's why everybody listening adults, especially like, where your pumps where people can see them, please, like so little kids can see them and feel comfortable about it. And don't hide in the bathroom. When you're at a restaurant. Like just pull your syringe out, give yourself insulin, and if people don't like it, who who could possibly care. Like Like, I just, I don't understand. I mean, I just don't understand giving.

Christina 1:09:02 I think I jinxed myself, because I have this group of type one moms. And we like meet up and we'll talk about stuff. And at one of these, that meetups we're talking and I'm just saying, you know, I haven't really run into Charlie. She'll just like polar stuff out, you know, right at the table at a restaurant. Like, we're out in public and she's like, shoving it in her leg like nothing's going on. And that's why it was just so crazy to me that she went from just like, Hey, it's me, too. Like, No, I'm just normal sixth grader that nothing going on?

Scott Benner 1:09:46 Yes, the peer thing. Yeah, it's the peer thing and the boy and it could have been a girl too. By the way. It could have been a mean girl or a boy or boy that she thought was nice or whatever. Who knows. Like it just, I get it like you're You're watching a very normal child interaction. But it's just getting commingled with diabetes.

Christina 1:10:06 Oh, yeah. And it's like, the tough thing is is, and I think you've probably experienced this. Nobody gets how serious this really is. You know? Like, they just like, No, I, like she's good. They say, like, all the time. Does she need a snack? Like, I'll call out to be like, Hey, Charlie needs to, you know, correct herself. And don't be like, Oh, should we ever eat something? Right? That's, you know, that. It's like, you're frustrated. She knows what it means. Just tell her she needs to make a correction. Yeah, no, it's because we don't have a school nurse.

Scott Benner 1:10:53 Right. Very, very frustrating. And I know, but that's the thing that that's why I think she needs to understand that mostly people aren't going to aren't going to know her life. And you know, the truth is, too, if you pulled this 10 year old boy aside and said, you know, you made this comment about her blah, blah, blah. Do you know that that could make her feel badly and start a chain reaction of events that could lead to serious health conditions for her in the future? A kid wouldn't understand most of those words. But they that kid would understand enough to go, oh, I don't want that. Like, but how are you going to? You can't you just can't explain that to enough people to stop her from having those situations. So you have to give her the shield. And the right not just a shield, by the way, but like the armor. I mean, you want her? She wants to be moving forward, not just defending herself. But do you really mean like just like, she hears that crap, she should blow through it. Like, like she's breaking down a wall of styrofoam. Just boom, I don't hear it. You guys don't understand. I'm I'm clear that you're not clear. And I don't hear you and I keep going. I listen to people who have my best interest at heart and understand my situation. Other people. I don't, that don't, you know, nothing against them. But I don't I don't. I don't take time to feel what they're saying. Because it's not important. It's just, it's noise coming from nowhere. And, you know, you take it internally and it ruins days and weeks and years, your

Christina 1:12:24 life. Did Arden ever run into this?

Scott Benner 1:12:28 I mean, Arden's run into like, like mean girls before. But she's, she always works through it. i My wife was saying to me the other day, she's like, I'm so impressed with Arden's like emotional maturity. Because like she, like even had a thing at school with a boy and another girl. And, you know, like, the boy might have liked Arden first. And then Arden was like, nine, I don't think I'm interested. But then the girl kind of picked right up with him. And Arden was like, Hey, is like I thought we were closer than this. And, and like, you know that it starts that way. And then when it ends are just like, You know what, it's fine. Who cares? Like just like, if they're happy then great. Like, you know, like, I don't know how she does that. Like, I would say,

Christina 1:13:13 Yeah, that would have been like, that's a superhuman power for a college girl.

Scott Benner 1:13:17 Yeah, she's just like, it's fine. Like Kelly's Kelly could explain it better than I could. But she's just like, she's so good at. She's so good. At just seeing the bigger picture. And not taking on the parts of it that are I don't know, unimportant. The

Christina 1:13:36 it's the emotional. Inner like, Girl girls are very emotional. Yeah. And sensitive. And she it seems like she has that. You know, why is beyond her years under control. Like it's not a big deal. We always say I say to my four year old this a big deal or a little deal? Like, sure.

Scott Benner 1:13:59 Yeah, no, no.

Christina 1:13:59 Do you think you're gonna marry that guy? But it's not a big deal.

Scott Benner 1:14:04 Right? Wait, yeah, seeing the bigger picture just understanding like stepping back. It's just a macro approach to things like, Could I be mad that this girl that I am friends with? took up with a guy who liked me and blah, blah, blah, like, all that stuff. And in the end, like I even said to her at one point, it was like, What's it matter? Like, if you don't want to go out with him? What's the point? And she's like, Yeah, no, it's just very, like, you know, she still needed to talk it through a little bit. But she got she got through it pretty quickly. I don't think I'll ask her on here the next time I'm on here, but I don't think Ardens ever cared what someone's thought about her diabetes. Like she doesn't care when people joke about it. Or, you know, you hear like a late night hosts make a joke about diabetes. Like I don't even I don't even think that. I don't even think she hears that. Like I just don't think she she cares about that at all. Yeah, so

Christina 1:14:55 I don't know. You know, and maybe it's a That's all she knows. You know, her body has only known being poked?

Scott Benner 1:15:05 Well, yeah, she wasn't she wasn't like she didn't grow to 10 without diabetes. And then suddenly people are like, Oh, my God, what's going on with you? But I mean, it doesn't mean that people haven't been like, what's that she just had, I'll have her tell her story. But she just had a situation in college, where she's wearing her pod. And like, this will be horrifying for some people to hear. But her, her professor came up to her and points to it and goes, and the professor like, she can do it better than me, but the professor's like British. So she's like, she came up to me and she's like, she's like, A, then what's wrong? What's wrong with you a, and she like points to the garden can do the whole thing. And she points to the pump. And Arden goes, I have diabetes, and I need insulin from this. And a woman's like, a woman's like, all right, and then walks away from her. And art and like, she's like, when I talked to her, she goes, you want to hear something hilarious? And I'm like, Sure. And then she tells me the story about the teacher. Right? Like, I know, plenty of people who would turtle up over that. Oh, yeah, yeah. And that's to me, like, look, everybody's got their, their line, right. But for most people, that's just a decision you get to make like, some people have psychological issues that would, would make it it's not just an issue, it's just not a decision for them. But a lot of people, you can choose to be upset or not be upset, right? You know, and like, I don't know that. Have you ever been in a conversation with somebody? And like, I watched it all the time. Online. And I'm like, oh, this person wants to be upset. Like, I don't know what they really want to be. But it's their inclination to lean into being upset. Oh, yeah. You know, and I see it every once in a while, like, you know, like I say, stupid, on this podcast all the time, like trying to be funny, or just like light hearted. Every once in a while, I'll get a letter from somebody's like, Well, you said this, and it was very upsetting to the person you were talking to. And I'm like, I'm like, wait, what? That doesn't make sense to me. And I go back and I look at the episode, I look at the person, I checked my emails. And you know what, I have an email from the person I recorded with, Oh, my God, I had such a great time. I hope everybody listening has as good a time as I did, like, but this is an unforced email that's just sent to me later. Like, it was so funny. And we got through so many things, and blah, blah, then I'll read a review of the same episode. And I'm like, Huh, that's interesting, because a person who isn't the person I interviewed has some clear thoughts about how the person I interviewed felt. But that's not how that person feels at all. So you sometimes it's just, you put it on? Like, they want to be mean, or they Yeah,

Christina 1:17:42 no, no, I know. There are people that I have a family member, we, we've seen, go on to Facebook, but after a couple drinks. You know, it's after a couple of drinks, usually. And so that's why sometimes, when did you take the time as to which that person sent it? Yeah, with a little liquid courage

Scott Benner 1:18:10 fired up as the person who manages a large online presence for people. I, for certain know that there are some things where people are just junky, and that I just ignore it and it goes away.

Christina 1:18:25 Maybe don't go on social date. That's where somebody needs to be truthful and not give them a white lie and say, you know, after a certain time, don't go on your social media,

Scott Benner 1:18:36 right? Yeah. Because then some people see that and they go, Oh, I get to be upset that that person misspoke. It's my turn. I get to be right. Here we go like that. That whole thing. And I don't know, it's just, it's just like, by the way that that example I used earlier, I was talking to a girl she's like, 23 years old. Her parents had like seven kids, right? And I said something I said something along the lines of by Your dad must have never been home like your dad must have just been that guy who like appeared every once in a while tapped him to be smacked your mom on the gas in the kitchen and walked away. And I paused that I went because you know, if you're gonna make seven kids, you got to keep it hot. And it's just such a dumb statement and clearly meaningless. And the girl like pause for a minute. And because she's the sweet kid, like she's 20, but she's 23. And then that's the other side of it. Like you can't run around going like you had a peak treat people equally. That's how I would have talked to anybody. She's 23. And by the way, she had a great time in the conversation and sent a long email about how lovely it was and how much fun she had and how she hopes people appreciate it and enjoy it as much as she did. But one person heard that and said, That's inappropriate. I'm like, it's inappropriate to you. It wasn't inappropriate to her. And if it was, she could have said so. And at the end of every episode, and Christina Europe out to have this experience. I'm going to shut off the recording and say to you, is there anything we spoke about today that made you uncomfortable that you don't want in the recording? Please tell me now you cannot hurt my feelings. It's absolutely fine. Oh, wow. And you'll get to answer that question just like she did. And by the way, it's not a rule, I could just delete the file. Like, I record every day if she if we would have got to the end, and that girl would have been like, hey, that thing you said 45 minutes ago about my dad smacking my mom on the butt. Like I It made me so uncomfortable. It ruined the rest of the recording for me, and I didn't know how to speak up about it. I would be like, that's fine. Let's just get rid of it. Yeah, yeah, I have no trouble with that whatsoever. Like, I don't want anyone to feel uncomfortable. But I also don't want to make a boring podcast that nobody listened to. And so you know, anyway, well,

Christina 1:20:51 well, it's all about expectations, right? Like, if you have an expectation of someone, like, Does this person expect you not to make jokes? If they've listened to it before? Shouldn't their expectation be, oh, he makes jokes. You know, like, every episode, there's jokes. So why are they getting disappointed? If they know that that's what they expect? You know, like, don't have these expectations of you to be, you know, buttoned up and polished. And not make jokes. Yes. When that's the type of podcast you have.

Scott Benner 1:21:30 Right? Right. It's, it's, I can't go through the whole thing. But like, it's silly and fun and poignant. Because if it's not, it's not interesting that Christina like, sound like a douchebag saying this. But this isn't the only diabetes podcast. But it is the only one that is listened to, with any frequency enough to put it on. Any kind of like Apple or Spotify list that shows you that, like, there are a lot of people listening to this. So I'm not saying that somebody else isn't out there saying something that might be really valuable for people with diabetes, they very well, maybe, but they're not there, their, their episodes are not being listened to 50 60,000 times. They're not like, you know, like, I just looked at something the other day, because I, you know, I have to stay in business to write like, I have to get advertisers and stuff like that. So I posted somewhere, you know, just looking for new advertising. And the here's what I said. It's, by the way, it's the middle of a month right now, I said so far this month, over 50,000 devices have downloaded over 290,000 episodes of this podcast, why is your company not on one of them? Right? Like that's my kind of like my pitch for that. You trust me when I tell you that if we took all the other diabetes podcasts and added up all of their downloads, you're not getting anywhere near that number. And I will tell you, it's because this isn't boring. And it's no, it's not bland, and it's not sterile. And it's it can be entertaining, and you might hear something you don't expect. Like for instance, today, a lovely woman from California came on with a lot of great ideas about how to be a good parent. And some guy who grew up in the 70s was like, why don't you just tell him to shut up? And you went, but that might not be like, I don't know if people will really hear it. But there was a minute, there was a minute in this conversation when you thought, Oh, God, I'm parenting my daughter. The way I would want to hear this not the way she would want to hear it. You Oh, yeah, you had that moment. And on any other podcasts, I would have been like, Oh, my God, ABA tell me more about it.

Christina 1:23:52 And can I tell you though, that I think that's also where you're hitting the nail on the head with the podcast is when you pull it up, all scroll, I'll pull up, pull up your podcast, like if I have a drive, and I listen, I'll go, and I'll scroll. And I was so excited that it's one you just did you know, because you know, I was all prepping and getting ready to talk to you. And I was so excited that one of your newer ones, there was a reality TV guy on there. Yeah. And I could not wait to hear about this reality show. And now I'm like, Oh, should I go? Try and watch that show? He's had nothing to do. Like you guys had great, you know, conversation. And it was a great topic. And I think everybody should, should get some some knowledge from it. But I also loved listening to the non diabetes stuff. And in this diabetes world, you kind of don't want to talk about it all the time. Oh, you were normal people too. You know,

Scott Benner 1:24:57 I could make a dry Episode of this podcast that was so factually clear, and and great for your management and all that other stuff. But I wouldn't listen to it. So if I'm not going to listen to it, how would I expect you to listen to it like, like when people, people already have enough trouble understanding their health needs, and the things that they should be doing? They don't want to listen to a pamphlet, be read to them. And no one else understands that. Like, I haven't heard a lot of other people's like content, but mostly, it's just dry. And I'm like, oh, yeah, so irritating. I would never make it through this, I'd sooner just throw myself in front of a truck. Like then. It's hard. Like I had this time, one time, I was consulting for a company. And they said, hey, you know, one of our things came up on a podcast, would you listen to it and tell me what you think? And I was like, Yeah, okay. So I'm listening. And I texted back to the person. And I was like, Where is the comment? Because I don't think I can make it through all this. This is so boring. And that person was paying me to listen to it to give them my opinion. And I was like, I can't do this. I was like, Who listens to this? I can think it's like when you watch a bad TV show, and you think, I don't think the director's mom made it through this. You know. And I just think that way about, about this like it in the end, I told somebody recently, I think my job is to trick you into taking better care of yourself. By by interlacing the things you need to know about diabetes into a conversation that doesn't feel like it's about diabetes. Right? That's all like, I mean, we talked about some really important stuff today for people who are raising kids with type one. But I said about 50 Stupid things while we were talking. But it keeps that many you know, they give us 50 I don't know. No, I actually said something. I think I'm like, cut out. What do you think of that? I was like, that might have been too far. But it makes a perfect picture to me in my head. And so like, I figured, well, that might work for other people, too. Anyway, Christina, I know what we've learned here today. You're a little too hippie dippie. I'm fine. Hey, you

Christina 1:27:20 know what, though? I've, I've been called that before. I like my oils.

Scott Benner 1:27:28 I didn't say anything like that. Maybe you should put some lavender in the diffuser and see if it fixes the hole. By the way, nothing wrong with that. They're just not going to fix anything. Like it's still Wofully you don't even we were talking about that. In one of the episodes Jenny and I. And I said like, at some point. In this episode, I am going to make fun of your diffuser. So if you can't handle it, you should stop listening now. And we had like a nice moment where Jenny's like, look, I love essential oils. And she's like, but they're not going to cure your diabetes. Right now. Yeah, it's so. And I said the same thing. I'm like, Arden tells me all the time. Like sometimes she's stressed down. She has little diffuser in her room. And she's like, it's lovely. And I'm like, yeah, it's great. I have no trouble with that in the world. I have trouble when I hear people say, you know, I forget what the example was. I used the opposite. I was like, my lumbago went away because I diffused this with this. Like that's that's not how that works. So, but anyway, you're really lovely. Thank you for your lovely to. Nobody ever calls me lovely back that you

Christina 1:28:32 are What's the word for boy? Lovely. I don't know. I'm already with lovely charming, charming charm.

Scott Benner 1:28:39 Oh, am I charming? Yeah, I was talking to a girl from South Africa the other day. And she goes, I just want to say something about your accent. And I thought I was like, Oh, here it comes. I'm like, go ahead, you know? And she's like, I love your voice. And I went oh, nevermind, go on.

Christina 1:28:57 Go I'm gonna

Scott Benner 1:28:58 go downstairs right now and tell my wife that I'm charming. And then I will. I will time how long she laughs and I'll tack that time but at the end. She'll be like, they don't know you.

Christina 1:29:12 Well, you're charming enough to have people want to come on your your podcast. And for somebody who say they like your accent or love your accent unless

Scott Benner 1:29:21 you are Christina. All right. When I get rid of my wife, I'm gonna call you up. This was by the way, I'll get a note about that. At the end. It was so creepy. He told this woman that boss Shut up.

Christina 1:29:34 Yeah, tell them to send a note to me. Yeah,

Scott Benner 1:29:37 you don't understand. Sorry. If you had that thought just now. You don't understand sarcasm. That's like go go figure it out. It's a lovely way of

Christina 1:29:46 are there a new generation?

Scott Benner 1:29:48 You think so?

Christina 1:29:49 A little? Yeah, it's it's the generation and then the ones that are older that comment on things. They're just angry and bored.

Scott Benner 1:29:58 Okay, and the younger one Insert two, what are they two Tachi here and brainwashed? brainwashed. Christine up. There we go. That was the least California thing. You've said the whole time we were excellent. Yeah. Christina. Yeah. Look at me and tell the kids anything else have opinions.

Christina 1:30:17 I have other opinions about different things. It's parenting that I'm a little more gentle about.

Scott Benner 1:30:21 Oh, cool. So I could have taken you down a different road. Remember, I

Christina 1:30:25 grew up in Idaho. So we shoot things. We eat lots of me.

Scott Benner 1:30:32 Oh my gosh. Well, I think what Christina is saying is if you mess with her kids, she's going to barbecue.

Christina 1:30:38 Yeah, you just have to hit that button. I did call the boy a mother. You remember at the beginning,

Scott Benner 1:30:44 you were like that? Yeah. Oh, yeah. By the way. It's funny, because in that whole conversation, I thought that was the only time you actually connected with your kid. Really? Yeah. Like when you said that kids a mother. I thought that kid probably thought Yeah, mom is on my side. Yeah, that's how it seemed to me, like good. Like, look at her. This made her so upset. She's so upset how someone treated me that she said something out of character. And she is 100% on my side. Like that's how I think that probably made her feel. That's for me. I don't know. i

Christina 1:31:18 Yeah, it probably did. Yeah. Also, I don't think she was into it until she was like, but I don't want him to get in trouble.

Scott Benner 1:31:26 Well, you made her too nice. Yeah. The kid to get in trouble. I'm gonna question my entire life. No, just the last. I'm joking. 11 years, not the whole thing.

Christina 1:31:39 Not the whole thing. Just the last 11 years. Oh, gosh, I

Scott Benner 1:31:43 wish everyone could have senses of humor. That include thick, thick sarcasm, you guys would all have it. Yeah. So alright, guys, I appreciate this very much. Hold on one second for me. Okay. Yeah, I'm going to ask you now if I said anything that made you upset that you need to have taken out so but I want to do that privately so that you don't feel like okay, hold on. Okay. Really want to thank Cristina for coming on the show and having such an open minded conversation with me. And I'd also like to thank the contour next gen blood glucose meter contour next.com forward slash juice box. If you're enjoying the podcast, please share it with someone else who you think might also enjoy it. Subscribe in an app like Apple podcast, Spotify, Amazon, music, Stitcher, wherever you get your audio at. And of course, check out the private Facebook group Juicebox Podcast, type one diabetes, I think you'll like it. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast.