#899 Diabetes Pro Tip: Transitioning
Diabetes Pro Tip: Transitioning
Scott and Jenny Smith, CDE share insights on type 1 diabetes care
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Scott Benner 0:00
Hello friends, and welcome to episode 899 of the Juicebox Podcast.
My diabetes Pro Tip series for type one diabetes began in February of 2019. Today I'm adding another episode. Jenny Smith and I are going to be talking about transitioning. We're going to do an overview of transitioning from your blood glucose meter to a CGM, from MDI, to pumping from pumping to algorithm pumping. And at the end of the episode, I'm going to add feedback from Juicebox Podcast listeners about all of these topics. While you're listening today, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan are becoming bold with insulin. If you'd like to help type one diabetes research, all you have to do is complete the survey AT T one D exchange.org. Forward slash juicebox. The T one D exchange is looking for US residents who have type one diabetes, or are the caregiver of someone with type one to complete a very short and simple survey. The answers that you give will help move type one research forward T one D exchange.org. Forward slash juicebox.
The diabetes Pro Tip series from the Juicebox Podcast began on February 25 2019, with an episode called newly diagnosed restarting over after that episode 211 was all about MDI episode 212 all about insulin, Episode 217 Pre-Bolus Singh, Episode 218 Temp Basal 219 Insulin pumping to 24 mastering a CGM to 25 Bump and nudge to 26 the perfect Bolus to 31 variables 237 setting Basal insulin 256 Exercise 263 fat and protein 287 illness injury and surgery episode 301 was glucagon and low blood sugars episode 307 Emergency Room protocols episode 311 long term health 350 Bumping nudge to 360 for pregnancy 371 explaining type one episode 391 was glycemic index and load 449 postpartum 470 weight loss 608 Honeymoon 612 female hormones and today episode 899 transitioning, you can find these episodes in your audio app Spotify, Apple podcasts or anywhere you get audio. You can also find them at juicebox podcast.com. And at diabetes pro tip.com. As always, these episodes and the entire podcast are absolutely free for you to listen to the information inside of this podcast. And more specifically inside of this Pro Tip series. This information is at the core of how my daughter has kept her a one C between five two and six two for over eight years without diet restrictions. Myself and Jenny Smith Jenny of course is a CDE who works at integrated diabetes.com Jenny and I we go over the topics go over the ideas in easy to listen to and digestible ways you can apply this information to your life whether you're an adult with type one who's been living with it forever, or a parent whose child was just diagnosed, I implore you to check out the entire series. It really will help. This episode of The Juicebox Podcast is sponsored by cozy Earth cozy Earth sells sheets and towels and joggers and comfortable things really that's what I should have said cozy Earth has comfortable things whether it's sheets or towels or clothing. It is soft, it is warm. Unless you don't want it to be warmed I don't even know how to describe the sheets or they keep you cool or they keep you warm. Depends on what you want. I don't even like I don't know if there's a word for it but your body is temperate in it is temporary the word. I looked it up it is a word it. How do I put this? I wear my cozy Earth gear on an airplane the other day. I wasn't too hot. I wasn't too cold. When I got home. I got my bed with my cozy Earth sheets. I wasn't too hot. I wasn't too cold. Everything is soft. It feels terrific. Check it out at cozy earth.com where the offer code juice box will save you 35% at checkout The podcast has a number of long term sponsors, Omni pod Dexcom contour G voc, US med touched by type one, athletic greens. Of course, you heard about the T one D exchange earlier cozy earth. All of these sponsors are prominently displayed at juicebox podcast.com. Or in the show notes of the podcast player you're listening in right now, when you support those sponsors by clicking on my links or typing in those web addresses, you are supporting the production of this podcast. So please, if you have the need, use my link. What I would like to talk about today is transition. Just a an overview concept for this one, but transition from just finger sticks to CGM transition from MDI, two pumping, transition from pumping to algorithm. Sure, can we do that? Yeah. All right. I thought we could all thank Isabel here for having her finger on the pulse of the people in the Facebook group and knowing exactly what people ask about, and what they seem most confused about. Why don't we start with MDI, because everybody starts there, right? After you're, you're doing it for a while, like, let's put ourselves in that place. We've been doing MDI for a while it's working pretty well, or at least at a baseline. We're shooting a Basal insulin once a day, and we are shooting a meal insulin to correct blood sugars and to cover our carbs. That's the basics of MDI. Okay, correct. So then we're in a doctor's office, but I'm gonna make up some numbers. Let's, let's say our basil. It's like, I don't know, let's say our basil is 10 a day. And let's say were, I don't know, one to 10 for carb ratio. Okay. All right. Let's say our correction is one to 100. Let's keep it all very like, like that, so that it's easier to talk about. Okay, round 10 numbers and numbers, we're gonna do that. So the math makes sense when people are listening. So we're in the doctor's office, and the doctor says, you know, you might like a pump?
Jennifer Smith, CDE 7:24
Is he gonna say it just like that?
Scott Benner 7:25
I mean, if it's a lady, she might be like, You made like a bump? I don't know, like, people are anywhere in between. There's some women have more masculine voices, Jenny, this isn't the point of what we're talking about. Yeah. So they see, you might like a pump. You are. I'm guessing, gonna have a couple of different reactions. I see a lot of people scared. Oh, no, don't change something. I see a lot of people are like, yes, please, because this isn't working. And maybe this will they don't know why they think that just right, they're hoping for a change. So the first thing that's going to happen is the doctor is going to translate your Basal insulin to this pump. So Jenny, you do that math for me? I correct I get 10 units a day injection, what are they going to do on the pump for me
Jennifer Smith, CDE 8:13
most often on a pump, because it's expected that your Basal insulin which and this is kind of outside of it, but within your Basal insulin will now be given by the pump as rapid acting insulin. So that's the first thing to understand is that you're injected Basal insulin, which is a specific long acting kind of insulin will now sit in your refrigerator as a backup in case of pump failure, right? So you don't put Basal insulin into a pump. The only insulin that goes in the pump is your rapid acting insulin of any of the brands, right. Depending on the pump, company, they all have a little bit of different kind of recommendations for type of rapid insulin, but it's a rapid insulin and to translate your Basal dose of what we said 10 units into a pumped Basal delivery, you would essentially take 10 units into a 24 hour day. Right? And that translates into a a dripped amount, right? Because insulin pumps drip drip, drip drip consistently to deliver that total amount of basil that you want.
Scott Benner 9:32
Okay, so let's clean it up for people who get lost very easily. You may be injecting trusty Abba love Amira, Lantis what are the other ones,
Jennifer Smith, CDE 9:43
Basil Glar or these are all based in jail.
Scott Benner 9:46
These are basil insulins. These are now gone. You don't use those anymore, because as Jenny points out, you're going to take your mealtime or your fast acting correction insulin, put it in the pump, and it's going to split it up. Those 10 units are going to get split up Over, not just over hours, that's how the settings the pump work, right? You're gonna come up with what is it going to be like point four, maybe an hour if you're 10 a day about like that, right?
Jennifer Smith, CDE 10:10
Right, depending on your pump, all of the pumps differ in their precision of a single drip of insulin. Some pumps can drip as little as point one, one, some can drip as little as point oh, two, five or point oh, five. So it just depends. But if you broke this down 10 units a day into 24 hours a day would be a rate of about point four, two, if you do rounding, right? Yes, some pumps, you may have to round that 2.4, because they can't deliver the point oh two.
Scott Benner 10:42
And you're, you're gonna hear that if you're MBI. and think, oh, at the top of every hour, it's gonna give me point 14 incidents on but it's not doing that it's going to break the rack to wait for Twos Up over the entire hour
Jennifer Smith, CDE 10:53
over the course of the time. Exactly. Now, the other step to this calculation is that we expect that your Basal insulin you've been injecting I'm trying to think how to say it. So people don't think their insulin is not working. But when you inject Basal insulin as its type it, it will not be absorbed as efficiently I guess is the better way to say it as it would from a pump where it gets infused in those little tiny drips over a very precise amount of time, a very precise dose. So your rapid insulin in your pump gets infused out of sight. And so we usually take your base Basal dose down by about 10%. Some, some physicians even go down by 20%. But the general idea is taking your base dose down by 10%. So 10 units a day taken down by 10% is one unit less, so nine units instead of 10 units. So if you do the math there, nine into 24 gets your rate down instead of point, let's call it point for an hour, down 2.37 an hour, which again, we'd probably round down to point three, five.
Scott Benner 12:05
And you're going to want to keep an eye on that because I've seen it go either way. I've seen that be right. And it's amazing. I've seen that be now not enough insulin, and people are getting high blood sugars. And they immediately like you hear them say like the pump doesn't work like well, you gave yourself less insulin and turns out you need right. So pay close attention to that.
Jennifer Smith, CDE 12:27
It also translates into the next step. Once you've been making some notes on this 24 hour dose of let's call it point three, five units an hour. And you can say Well, it seems okay here. But then at this time of the day, I'm always high no matter what I can skip eating and I'm high I can eat and I go even higher. Well, that's when the next step is Basal testing. Right, we need to really look at it and say, where is that point? Three, five, sufficient and where is it not? And where might it be too much.
Scott Benner 13:01
And you might notice, and this, this might sound a little heavy if you're thinking of switching but you could put your pump on your belly and have a different reaction to the insulin that is if it's on your hip or your thigh, you know, there's reasons like Arden's thigh doesn't work as well as her stomach does,
Jennifer Smith, CDE 13:19
you know, neither does mine, I don't use my thighs anymore. Yeah, back of your arm might
Scott Benner 13:23
be better than your, the back of your butt. Or who knows, like right and with
Jennifer Smith, CDE 13:27
with this being new from coming from MDI, to going to using a pump, I would suggest initially utilizing and testing out within an area of the body, you know, we talk a lot about rotation, not only should you be rotating, if you're doing MDI, your injection should be going multiple different places, not just the same site over and over. The same goes along with pumping, those sites need to be rotated. If you're new to pumping, however, you really want to get an idea if your settings are fairly good. Stick with rotating around your abdomen, right? Get an idea. And then once you have that fairly well set, you can then move to upper body or the back of the arm or maybe your thigh or you know your lower back and see if you notice any difference some people do and some people don't at all.
Scott Benner 14:19
No, right? No. I mean, there's it's your body composition, hydration, how you know where it's actually going inside of you. Is it subcutaneous Is it very close to a muscle? We don't overwhelm people, but the muscle can kind of I don't know what the term is like what a large muscle group can. It kind of lessens the impact of the insulin but for the life of me, I can't think of why right now. Do you know what I mean?
Jennifer Smith, CDE 14:44
lessons? I know I don't know what you mean.
Scott Benner 14:46
I always thought that's why the thigh wasn't a good spot because it was a large muscle.
Jennifer Smith, CDE 14:51
Well, it might have more to do with how well the insulin at that site is getting absorbed. Like that's a big reason that I don't use My thighs is because whenever I tried using it, either I got a clusion alarms because the cannula was bumping into muscle or potentially that I had nicked, like a small vessel under and it had been clouded kind of near that site were was trying to infuse. And so that backs up into the pump and the pump tells you hey, the delivery of insulin has stopped. It gives you nice alarms. Right? So I think in some cases that may be part of the issue is the proximity to muscle, yes. But also I it was either painful or I got occlusions like it just never worked on my thighs.
Scott Benner 15:41
Okay, I'll say, Look, I'm learning from the podcast. Finally. Finally, I learned about this every day, you learn a lot. Okay, so now we've, I think here's a good place to insert that it is possible that there are some people on MDI who are achieving reasonable lower blood sugar's some how do I say this? Sometimes your doctors over baseline you because they don't think you're covering your food correctly. And
Jennifer Smith, CDE 16:12
or they may not have looked at your records enough to know why they've you know what I mean? Like, it might just be easier to backup with enough Basil with what they're seeing in your data. Yeah. And it may as you're saying, it might be wrong,
Scott Benner 16:26
right, right. So like, imagine if you're a person who has been getting more basil than they really technically need, but you kind of forget meals, sometimes you don't cover all your food. But now all of a sudden, you have this pump, you're like, Oh, it's so easy. Now, I just push the buttons for my foods, and now you're covering your meals well, and you're like, why am I low all the time? Right? It might be because you're using more insulin than you have been in the past. So those are things to look for that I see people struggle with the beginning with a pump. And I do want to say I think there's a, I think there's a period of transition there. It's not going to be like if you're nervous. It's not unfounded, you know, like you are starting a whole new way of doing something. But it really is just another way of delivering insulin to you. It's not that complicated.
Jennifer Smith, CDE 17:16
And I can say personally, when I switched from MDI, having done MDI, a long time before I started using a pump. By the time I started using a pump I was already doing. I was already doing somewhat of a Pre-Bolus. But it wasn't the same once I switched to a pump, there was a definite time difference between my Pre-Bolus with injections, and there still is, yeah, I can take an injection and my Pre-Bolus Time is not as long as it is on a pump. Right? Again, and of one. But that's what I noticed. And so those are some things to pay attention to between MDI and what you're doing along with what you said about maybe the doses you were taking on MDI, were covering a certain way for your rapid insulin for meals and corrections. And now that you're on a pump, your meals, the food hasn't changed, your strategy has stayed the same. And things are looking
Scott Benner 18:14
weird, right, right there, you do have to step back a lot and try to see what's happening. One reasonable reason for that could be reasonable reason why it wasn't right. But anyway, you use an omni pod and delivers insulin a little slowly. Like it doesn't just like you take a needle and you go Yeah, the pump is pumping over time. And I don't imagine you use very large bonuses, but larger bonuses take longer. I've seen I've sat at a restaurant with Arden and, you know, you forget you've done it and you kind of still here like that, like think like click clicking. It's still giving her insolence feels like it's been five minutes, you know, and yeah, so that's, that could be part of it. Anyway, these are things you're going to learn along the way. They're new lessons, but they're not a reason not just try, because you're going to gain what you're gonna gain so much, right? Like if, to me a pump is at its core, I've always thought of pumping as a way to be able to manipulate basil. Whereas on MDI, I shoot it in, it's in there, nothing left to do. If it's too much, if it's too little, it's what it is, you know, with MD with a with a pump, you know, you can go back and listen to the Pro Tip series. I think about like, wow, if we sit down to a meal, that's all of a sudden much carb heavier than what I usually eat, I could do a Temp Basal increase, they try to help me with this. You know, I was thinking a minute ago when we were talking about breaking the 10 units down into point 4.35 That if you think about putting a sprinkler out on a dry, dry lawn, right, and you need to give your lawn 10 Guys gallons of water, you could come along and dump it on all at once, it'll just be there, that'll be it right, or it could break it up into a little point three, five gallons every hour and go back and forth. And just a light covering, covering, covering, covering, you're never gonna soak it down, you're and it's just I think of basil like sort of like that. Sometimes you're just,
Jennifer Smith, CDE 20:20
and that's a good way to think about it too. Because if you consider that slow Basal drip that you are getting from a pump, when you inject your Basal insulin all in one clump, right? You can, depending on the kind of activity you like to do, you may have found that you have to pay attention to Gosh, I'm doing like a really heavy arm workout, I'm probably not going to inject my Basal insulin into my arm today, I might inject it someplace else, right? Because there's this whopping dose sitting underneath your skin. And any kind of insulin, whether it's rapid, or Basal can get enhanced in action, the more active you are, and especially if you're using that site. So, you know, those are the kinds of things that having those tinier doses that you can manipulate and adjust, especially with the variables that you know, are coming in the day.
Scott Benner 21:21
If somebody's listening and thinking like, well, they have spent the first 15 minutes talking about Basal insulin, it's because it's really important, and nobody tells you it's important setting. So if you listen to this podcast, like while I do MDI, they're always talking about, like, their settings on their pump or anything. This is still settings, you know, if it's MDI, it's your settings, it's, you know, these Basal carb ratio, correction factor, they're all settings. So it's just very important to have them. If they're not accurate to your needs, then everything else is just going to be a mess. And especially Basil, basil is wrong. The whole day is confused. So okay, so we've translated our basil, our insulin to carb ratio, does the doctor keep it the same? Do they usually like what is common?
Jennifer Smith, CDE 22:06
They may keep it the same, especially if your records prove to show that it seems to be for the most part working fairly. Okay. Right? Could there be improvement somewhere, possibly, or whatever, maybe that's also part of the reason that they feel like a pump might actually be better. Maybe you're the kind of person that just eats really slow digesting food. And so you've had problems with taking your insulin and having these big drops in your blood sugar too fast, and then it ends up catching up with you. And then you end up high later, and you've treated low blood sugars, right? And there's not a timing thing that you can really get quite right with MDI. And maybe the doctor says, Well, why don't we try a pump, because hey, you're eating these types of foods more frequently, we could actually use some of the smart features on our conventional pumps that allow you to take some insulin for food, we're calling these extended boluses. And you can just kind of like basil. It's almost like a secondary use of basil. But for a Bolus, where you drip drip, drip drip drip a Bolus in over a certain amount of designated time, you
Scott Benner 23:13
know, there's just, there's so much you're gonna get out of having a pump there, there's also going to be some things you need to know, sites can, like they're going to tell you whatever pump you have, they're gonna say this pump you can wear for X amount of days, or X amount of hours. But sometimes sites go bad. You know, sometimes new sites don't work as well in the beginning. Those are little things that you'll learn along the way. There's, if depending on Arden's blood sugar, she might put on a new pod, and we might just Bolus a little bit to get the site working. This morning. I woke up in the morning, I saw that artists blood sugar was trending up overnight. And listen, for those of you just switching like Arden is looping, but I can see how much insulin is left on a pod remotely, which most of you aren't gonna be able to see. But I can see she was down to like 30 units. So this is the end of her sight, right. And I just spent the weekend with her. And doesn't matter. But we were in a lot of restaurants this weekend. So Arden got a lot of insulin this weekend. And in my heart, her blood sugar is drifting up because this site is kind of done. So because you have experience, yes, I can just tell and you will be able to one day as well. So I sent her a text and I said I wouldn't go to class with this pump one. Because if she does, she's going to spend her whole day with blood sugar around 150 And she's going to be fighting with them constantly. And bolusing and they're not going to work and and by the way, if that happens, and then all of a sudden she gets crazy active out of nowhere. She might experience a low blood sugar from all this insulin kind of sitting in this right over us. Yeah, getting this pole right. And so like that's Here's the thing you'll learn along the way, you'll learn, you know what people worry about so much like, well, you know, do you travel with pumps? If we go too far from our house, we do. If it's a 15 minute turnaround, we don't like, you know, what, I'm gonna have to have insulin with me now, like, I don't know, we don't travel with insulin that frequently, as long as we're in your home base, you know. But if we go far, you know, half hour, 45 minutes, and it's not something we want to turn back from, we'll take insulin with us, you know, you just you, my point is, is that it becomes all second nature at some point. Just like everything else about diabetes, you're gonna have experiences they're going to teach you, you'll learn from them and move on. Speaking of moving on, you'll think I'm gonna go from MDI to pumping, to pumping to algorithm pumping, but I want to do CGM is first. So you have a meter. And that's how you check your blood sugar. And that's all you have. When you're in the doctor's office. The doctor is like, you know what you want to do?
Jennifer Smith, CDE 25:59
It must be the same doctor.
Scott Benner 26:01
I got one of the drawer here. Take this a sample you try. You'll love it. They're gonna try to give you they're gonna say to you, hey, you might want to leave Ray, you might want to Dexcom if you're on a Medtronic pump, they might ask you to do whatever the Medtronic CGM is called. And you're gonna say I don't need that or you're going to be newer. You're gonna Yes, please.
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Wherever you fall on that you do want it. Your insurance covers it you want it? That's for sure. Right? Tell me why.
Jennifer Smith, CDE 28:49
And I think it applies in all realms of diabetes as well. Right? Not just in type one diabetes, but also type two diabetes and even worthwhile and gestational diabetes. I know there are some rules in terms of when it can be prescribed whatnot. But I think it's beneficial all around what you miss with finger sticks are all of the little dots in between. So where things are trending, right, so if it is something that your doctor does bring up? Absolutely say yes. Right. You may not know how to look at the information or what you're getting from it initially. But it's so worthwhile.
Scott Benner 29:30
You want to know what you don't know. And with finger sticks, especially if you're newer to diabetes, or if you just been doing them your whole life and this is how you tend to think of it. You do the well i i test before I eat or I test before I go to bed or I test before I drive. And right. And I know you've asked yourself what's happening when I'm not looking right like and if you haven't asked yourself that. I wonder how do I go from two 50 to 50 in an hour, like how does that happen? And you'll learn you'll start seeing the impacts of activity and the lack of hydration, and different foods that you eat. The age of your, your insulin pumps cite all these different things that have a huge impact on the way your blood sugar moves. And now suddenly, it's there. A CGM is going to show you minute by minute. I think it's every five minutes. Right.
Jennifer Smith, CDE 30:32
And I think there are there are some people who have been using it long enough that can say, there can be some frustration around the amount of data that you get. And I wouldn't disagree with that I but I do think it's how you interact with the data, right? It's how you actually take a look at things and what you do with it and what you learn from it. And you'd have to, you have to expect that in the first month. Let's call it of using a CGM, you're gonna see a lot of stuff. And so rather than being so very emotionally reactive, again, taking a step back and kind of looking at the data to be able to make better decisions about what you felt like was probably happening, and now you can actually see it
Scott Benner 31:21
right. Well imagine you have your sprinkler out on the yard, and you have to keep the dirt moist because you've planted grass seeds, except every time you look out, it's kind of dry. That's the CGM. You look at the CGM ago Oh, from 3am till 6am. My blood sugar's 140. It's pretty stable, but it's 140. I wish it was lower or moister. I can turn up the sprinkler a little and put on a little more insulin and make it where I want it to be like push that number download
Jennifer Smith, CDE 31:48
and the CGM can show you that if you're really looking at it. That way the CGM can show you where did it start to lose? Right effect? Where do I start to need to add more insulin? It's not once you get stuck higher or once you get stuck lower than you want. It's before that so any drifts up or drifts down. You can see that very clearly on a CGM I, you have a really good example I think from when Arden first started using her CGM, it was like that overnight thing that you were constantly missing was at Lowe's when you had finger sticks, and I would put all you could see them.
Scott Benner 32:27
I thought I was a genius. I've said it before I would put Arden to bed at 180. And she'd wake up at 90. And I was like, Look how good I am at this. And what would happen. We put a CGM on her. She was 180, she'd go down to the 50s sit there for hours, I'm assuming her liver would be like, hey here, try not to die. Here's some, you know, here's some, here's some glucagon, I'll give you a little bit. And then she drift up to 90 overnight. It was happening constantly. So the reasons for that are mind numbing is not for this conversation. But we were bad at bolusing for dinner. We were her basil wasn't like there were so many things that weren't right.
Jennifer Smith, CDE 33:03
But you didn't know it because you couldn't see what was happening unless you really did a finger stick even an hourly finger stick, it would have caught a drift. But it still would right? But it would have still been confusing unless you've sat down and you connected all those dots. And you could say, well look, look at this. And you probably I mean not necessarily wanting to see your child sit at 50 for three hours before your body actually reacts and gets you the glucose that is needed to bring it up. But you'd have on a first finger stick probably under 70, you would have ended up treating so you also wouldn't have had the information to show. Well, how much do we need to take away? And what do we need to do differently?
Scott Benner 33:45
I can't I can't say how valuable it is to be able to see a graph and to enter look at it every three hours or you know what's it look like over six hours, like Jenny's point is great as the you you don't know why? What happened happened? It's um, if you're married here, it's nine o'clock at night. And you're now in an argument. Right? And you think I don't know what just happened. But mostly this is guys like they're like what? They searched the last five minutes their brain and I've not done anything wrong in the last five minutes. But if you could step back and see a whole graph of your day, you'd realize that at 630 at dinner, you said something really stupid, and now it's hit me at nine o'clock. So I think that that can be similar. You could have cheeseburger with french fries at dinner at eight o'clock at a restaurant and hit it with a great Bolus. And you're like, oh, wow, my blood sugar's still where I want it to be it's 140 After dinner, that's not bad. And two hours later, it starts to jump up. And that doesn't make any sense to you because you haven't listened to the Pro Tip series. You don't know about the fat and the French fries and the slow digestion and how your blood sugar is gonna go up afterwards. But at least if you see it on a graph, and then you go have those French fries and that burger again. You see it happen again. You can go Oh, I could get get ahead of this, right? Yeah, I could not say that stupid thing at dinner. And now we'd be watching television and she wouldn't be yelling at me.
Jennifer Smith, CDE 35:06
Right. And if you have a pump, you can also address it a different way than waiting for it to finally start rising and getting too high, you can offset it ahead of time knowing what is coming, because you've had the experience that, oh, it always hits around two hours. So I'm going to start doing something about an hour and a half before that. So that it actually doesn't happen. Right. So I mean, yeah, it's million
Scott Benner 35:32
ways to handle that if you're Yes, right. For for art in an hour after she has french fries, we have to Bolus for the fat. And there's a calculation you can do. And there's that heads off that secondary rise and doesn't cause a low later. That's the other great thing is the everyone. When you don't have enough data, you think, Oh, if I just keep throwing more insulin here and there, it's gonna be it's not true. Like you can match the need up with the impact of the insulin and never cause a low, right. And that's something you're going to learn looking at a CGM that, that uh, that a stable line on a CGM is really your insulin, your insulins pulling down and your food and your other impacts are pushing up. And neither of them are winning, like so if you can kind of imagine that line going off into affinity nice and stable. There's invisible lines. cables attached to it. One's trying to pull it up. One's trying to pull the line down, and neither can win because you have a great balance between your insulin and your knee. Yeah, so that in the CGM, like, seriously, like, I don't care, like there's Dex comms and advertiser, it's not like I'm saying that like, get a CGM. It's of any,
Jennifer Smith, CDE 36:43
right? Absolutely. I mean, I've said before, many times if somebody was going to take my technology, I would fight for my CGM. Before I'd fight for my palm. Yeah, no 100% would keep my CGM.
Scott Benner 36:58
I'll throw this here too. Even though it's about like, leaving quote unquote, finger sticks, you're never going to leave finger sticks by the way, you're going to need them. You're gonna test when you're not sure about your CGM. You're gonna test when you're making big decisions. I listen to my daughter's blood sugar looks high on her CGM, and we're gonna make a big Bolus. I said, Look, you gotta test we got to know this numbers, right? We can't just start throwing insulin in here. And you're actually 40 points lower than this, or whatever.
Jennifer Smith, CDE 37:23
And I think it's also really important to acknowledge what you know about how you feel around certain blood sugars. Because again, technology. It's wonderful. And it's so much better than it was years ago. But it may still not be accurate at certain points. So always those finger sticks are important to continue to use. Because if your symptoms or how you're feeling doesn't go with what your CGM is reading, I guarantee a finger stick isn't gonna lie to you not unless you still have like, apple juice on your fingers.
Scott Benner 37:58
I was gonna say and I didn't get to it just an accurate meter, just a blood glucose meter. Yes, they're not all the same. They don't all work as well. Don't just take the one that doctor handed you from the drawer, do a tiny bit of research use the one that I that advertises here because that's the one we use and it's amazing and, you know, like or do what you can do your own research and find out I will throw out a little story here. Because I did spend the weekend with my college age daughter, which I haven't done in a while as a visitor at school. Second night she was with me. We replaced her CGM. Okay. So at five o'clock at night, I said, Hey, your Dexcom is going to expire one in the morning. You should switch it now. It's before we're going to eat dinner. We'll get it back online. It will have it we can do some finger sticks through dinner. And then it'll be rolling and working well by the time we go to sleep, because it does take a little while for some people where to look right. You know, she does. I don't want to do that right now. So then when do we change her CGM? 10 o'clock 11 o'clock, you know, like, oh, so then it's done. So then it's wonky for the first couple hours. And for Arden, if her Dexcom is wonky, it's wonky low when she first puts it on minus two. Okay. So like, I mean, it'll be like you're 42. And she's 10. Like that kind of thing. Yep. So there's a lot of consternation in what you should do. I'm a fan of letting it be on for a little while and calibrating it to help it get along a little more. But now we're asleep. And it's like BP people. All I could think was I told I know I said this. Nobody listens to me. But that's fine. And I'm like, and I know she's not that low like and but it's worrying. So now she's, she's asleep. And I get up and I'm checking her blood sugar and she wakes up. She's like, What are you doing? I'm like, your CGM is going off. She goes, I'm fine. It's like okay, so I tested her and she was 130. And I was like, okay, so she's right. And I did a calibration and it came together. Other pretty quickly. And that was it. Having said that, we could have done that at five o'clock. There. So there is a way to time, your technology. Now the new g7 is going to have a shorter warmup period, which will help overlapping you'll be able to soak your sensor, which I'm not going to bother explaining here. But yeah, but as the technology gets better, so should those things. But that is not to say it's not, like hands down. The most valuable thing that's happened to people who have any kind of diabetes. Since I've since I've been aware of diabetes, so absolutely. Okay. All right, Jenny. Now we got our CGM. We're using a pump. We're looking online. And we're like, see, this isn't that the doctor is not gonna go you know, you got to do. That's not gonna happen now because this stuff's also new. Maybe Maybe you're really in tune doctor might say, why don't you get an algorithm? But for the most part, I don't think I think that's the thing you're gonna figure out on your own a little bit. So all this stuff we're talking about about, you know, the Bayes will be incorrect. And you might need a Temp Basal here. You might need an extended Bolus for fat you might need all this. There are pumps that make those decisions autonomously. Yeah, you have to be wearing at this time, you have to be wearing index calm, because it works with that correct. But
Jennifer Smith, CDE 41:19
or med tronics. Um, CGM? Yeah. Because they're their system also works with their pump.
Scott Benner 41:25
Yes. So there's a Medtronic version of this. There's a tandem version of this. There's an Omnipod version of this. All their algorithms are proprietary, they work slightly differently, but long, and the short of it is they're going to give you insulin when you need insulin, and they're going to take insulin away when you don't need it. They're going to endeavor to stop you from getting low, and endeavor to stop you from getting too high. You
Jennifer Smith, CDE 41:48
still know how they do that it was with targets. Yes. Right, right, specific targets in each of the different pump systems. Medtronic newest one was just approved, which is really nice. But they all have specific targets. So how that algorithm works is based on when and how to give you more or less based on a target and based on what the system is projecting off of your current CGM trend. So it's a very interesting, like the algorithms don't just willy nilly deliver or take.
Scott Benner 42:24
Like, I think maybe now more,
Jennifer Smith, CDE 42:26
right? Yeah, exactly. There's a map to the algorithm right
Scott Benner 42:29
Gremlin inside of your pub flipping a coin going, Oh, my God heads. Let's do it. So but it's it's it's stunning. Now there's another version. There's a number of other versions there are Do It Yourself versions. There's Android APs. There's loop. I think, Jenny, you loop. Right. I do. I think you would
Jennifer Smith, CDE 42:48
have been looping for five and a half years.
Scott Benner 42:52
And Arden has been doing it. I think since 2019. Maybe? So yeah. And you're Arden's using loop three, as am I and you just switched to it as well. So like, they're all just different versions of an algorithm making decisions about insulin based on your CGM trend. That's Yep. They're astonishing. They work incredibly well. They are not magic. I know in all settings, all knowing how to Bolus for certain foods, understanding the impacts of things, your digestion, your hydration, like all the things that are important about MDI are the same things that are important about pumping are the same things that are important about using an algorithm.
Jennifer Smith, CDE 43:38
And you made I know, people can't see you, but you were very in a line going from MDI, to pumping to algorithm. And I think that's, it's a really important piece. For those who are listening to understand if you're kind of listening to this, because these are not pieces in your life already. Right, and you want to get an idea. There is 100%, I'd say 1,000% value in learning on MDI. And then moving to a conventional pump, that does not do anything for you, meaning it does not use an algorithm. There's absolute value in that, you know, we talked about testing, and evaluating settings, and learning about all the variables, food and activity and everything and how to adjust your pump or your insulin doses to accommodate for those variables. I think as you mentioned, when you said you owe your pumps, like, hey, let's start on algorithms. I can't go as deep as you. So it's a totally different doctor, right? But in that sense, there are I think more doctors today who are thinking algorithm, but in my personal and professional In all opinion, I think some of them are thinking that too fast. Okay? They are they are moving somebody to, hey, you're MDI, let's move to this algorithm driven system, whatever the system is, whether it's Omnipod, five, or tandem or Medtronic. There is, there's a missing piece in the middle there, that if for some reason, and we talked about CGM is potentially not being always accurate or technology failing. If your pump fails in its algorithmic dosing, and you have nothing to step back to, you're at a loss. And it's important to understand that, you know, so I can't emphasize.
Scott Benner 45:42
It's incredibly important. Jenny's been talking to me about this privately for years. Honestly, she's like, people can't just be put on the machine, the machine does the whole thing. And they don't understand why it's happening. Because, you know, the general argument is, what if the machine stops working? I don't even think that's the need for that. No, I think the need is, is that this is a thing you have to understand. Like it, no matter what none of this machine stuff is at the point where you don't need to know how to how it works. It's not AI, it's not even a computer like you know, used to have to know how to fix your computer, because it would break all the time. Nowadays, you buy a Mac, it'll just do the thing you want it to do, you'll never have to touch it, and it'll die. At the end, you're like, Oh, my Mac doesn't work anymore, you get another one. And you don't need to understand how a computer works. To use a computer. You need to understand how diabetes works. To have diabetes, I don't care what version of care you're using, I don't care what the next one is. Now, if someone magically comes up with something one day, where it just works, no matter what, like a, like a laptop from Apple, okay, then then okay, then God bless. If you want to skip it, then skip it. But I'm still gonna say, that isn't happening anytime soon. Because of not just the things we've mentioned today. You know, your insulin pump site might not work on time, like your CGM might not be right right away, like all the other things, it just not happening anytime soon. So you don't want. The worst thing I can imagine is that you put an algorithm on a nine year old who it works for. And then five years later, the kid hits like puberty hard or something and you have no idea, like the algorithms doesn't know you just became a completely different person, you're gonna have to change your settings to make that work, right. And that takes experience. And if you I think if you ever find yourself listening to Jenny and I talking and thinking, How come whenever something comes up, they just fill the next space with something valuable. It's because Jenny's been living with diabetes for over 30 years. And I've been staring at my daughter for 15 years watching her have diabetes. And I have a never ending supply of experiences and answers in my head because I learned through them. Yes, that's why and that's why you? Yeah, like you didn't go to like diabetes University where they told you something secret that they don't tell everybody else, right?
Jennifer Smith, CDE 48:14
No, no, no, not at all. I mean, I have valuable behind the scenes, like information about disease states and those types of things from a medical knowledge base. Absolutely. And understanding them helps me to understand some of the navigation of that with diabetes, but the lived experience and the work that I get to do with so many people, that's the valley that you can't teach that. In a university, you you can't teach, there's no degree and diet.
Scott Benner 48:47
And for your situation, you've been helping people for so long it professionally. I tell people all the time, like, it's, it's gonna sound self serving, but it's not like it's that I was able to get advertisers for the show. So I get to turn the show into a job so that I could put this much effort into it. Because I learned every day I talked to people, like you'll hear me say like, Oh, I was talking to a guy the other day, he said something about this. That's me. hearing something I'd never heard before and right and retaining it and being able to apply it to a situation go, oh, you know where that'll help here. And then you get to keep expanding those conversations. I'm going to get to something here and you get to keep expanding those conversations till they help other things. We did fibroid episodes. Now we hear from people are like, Oh my God, my life is different. Because I got my thyroid managed well, I'm getting a lot of my I didn't realize about my iron and my ferritin like a lot of women especially are getting back to me like they're feeling so much better, because it's something they heard on the podcast. They heard it on the podcast, because I was able to focus on this because this is what I think about And now and now it's coming to digestion. And that because we had to figure out a problem with my daughter's digestion. And then we shared Get on the podcast now I've seen that help other people. That goes for little things about diabetes too. Yes, that's how this stuff spreads. This is a repository of information, but you're gonna build that in your own mind. Correct. But not if somebody slaps an algorithm on you and tells you don't worry about the thing. I'll take care of it.
Jennifer Smith, CDE 50:18
Right? Because it one that's such a, that's such a big thing that I hear well, shouldn't it be helping me with this shouldn't be doing this shouldn't? The one word I hate is learned, shouldn't have learned that I don't need this much insulin at two o'clock in the morning. Nope, your system isn't learning. I promise you it's not learning. doesn't keep track of two o'clock in the morning, gosh, I gotta give less insulin for this person. It's not that's it's not smart.
Scott Benner 50:44
Now. And Jenny, do you know oddly enough, as we make this episode, I put up an episode today called Rise of the Machines, where a guy comes on to talk about his Android APS system and how it he does believe it's going to learn in the future. Correct is so exciting, but not now. Like, what's one of his examples? He said, location services. So if you say I'm having pizza, and it realizes you're at Domino's, okay, and you have an experience with insulin, at some day, it will remember that experience. Yeah, if you go to a different pizza place and have a different experience. It'll remember that if you go to a pizza place, it'll remember that if you head back to Domino's, it's gonna go Oh, we're back at Domino's. This. That's not happening right now.
Jennifer Smith, CDE 51:33
No, in fact, there is there are some. There are some apps that actually you can track that way. Like you can take a photo of something and tap the location indicator. And the next time you come back to that location, you'll be able to see what your dosing looked like what your CGM trend looked like. So you can learn from Bob's pizzas, Friday night, last week to this Friday night, maybe I should change my strategy, it looked like this. And I want to improve this right or do it differently. But those they need to be married right into the pump so that not only do you have Okay, now I'm at Bob's pizza, this is what I had. And hey, let's the pump then can acknowledge and I'm going to do something different for Jenny.
Scott Benner 52:17
But for that happening just automatically, that's not here yet. 2023 on the pod five doesn't do that. Tandem T slim doesn't do that the control IQ doesn't do that. The mechanic doesn't do that. Now, it may have happened one day. Sure. But the other I think the other thing is, I know you want your days to be easy, and they can be they can be much easier than they are now they can be more your intuition can come into play as you grow. But this is a lifelong thing. And what you want is you want to get to the point where I saw Arden get into this weekend, where we sat down to this meal, there were 16 different things. And she just looked at it and picked up her phone and went and pushed the button. Yeah. And I was like, how much did she give? She was I don't know, I told it was like 85 carbs. And it was and she and I was like, okay, and then she was okay. And it was okay, just looked at a table at a restaurant. And she's like, I think about this much. And and that's boy, forget this podcast and everything else. It's that's where you want to get to where just where you wake up at two in the morning, you see a high blood sugar and you go, Oh, I know what this is. And that does come it really does come. So anyway. But you're gonna transition along, by the way, I think algorithms are amazing. And
Jennifer Smith, CDE 53:42
yes, they are. Absolutely I I love my algorithm. Absolutely. But I've also learned to work with it. And I've learned what it can do and what I still need to tell it to do. I think that's the big thing about algorithms is knowing that you still have a fair amount of action to put in to it so that the algorithm can work with you.
Scott Benner 54:04
Yeah, yeah, I wouldn't want anybody to think like, oh, you're using a do it yourself loop. It's magical over the other comp there. It all is about the same. Like they all need your help. They all need your intuition. They all need your knowledge. There's nothing if you think you're going to just put a loop on or on the pod five, and it's just going to be perfect. Like you don't have to do anything. Like that's not going to be the case. No. Yeah. So but don't be afraid. No, like I I'll say something here on the hall, save myself Saturday, make a beat and make myself sad. Yesterday was my friend Mike's would have been my friend Mike's birthday. And I don't want to bring all this down. But Mike had diabetes. Type one when we were teenagers. He's not with us any longer. I believe that one of the reasons Mike's not with us any longer is because Jenny alluded earlier that I was stepping along with my hands while I was talking about things like Mike Never came along. He just somebody gave him regular and mph. And he used it long, long after he should have been, you know, didn't have updated meters and didn't you know, he didn't do the little things that you do to come along. I mean, I guess what I'm saying is you don't want to be managing your diabetes like it was 10 years ago. Right? I don't think so.
Jennifer Smith, CDE 55:25
I think you're also bringing something in here. That's really important to consider, because you've, you've talked about, you know, practitioners bringing up hey, why don't you try a CGM? Hey, why don't you try a pump? If, if you're the one always going to your doctor asking for what's new. I don't know. I you know, and your doctor is very willing and can talk about it then with you. Maybe they didn't bring it up. But they're very, they're knowledgeable about it. Once you do get on it fine. But if this is someone who's never really brought it up, and kind of like, shrugs their shoulder and like, sure you could try it, whatever you may need kind of like your friend maybe didn't have a doctor who was keeping up with what could have been better for him.
Scott Benner 56:10
Yeah, yeah. Yeah, you don't you have to take this as a, I don't know, if you want to call it a disease or like, some people don't like that word. But this is a way of living, that it begs you to be involved in it? Yes. Like, it just, it just really does. You have to be aware, you have to take some time to learn what is happening with technology, what's happening with insolence, you know, and you need to move along with it. Because if you look back 50 years, I still interview people who are like in their 70s and have had diabetes forever. And they don't even understand why they're alive. Like, like, you don't want your life to be a coin flip. You don't I mean, like there are things you can do to to, to give yourself better health outcomes. And those health outcomes are not just health outcomes, their quality of life, they're your they're your psychological state of being like there's so much good that comes from just understanding. I know that sounds silly, but how to set your basil right? And make sure your correction factors, right. And you know how to cover the foods you eat?
Jennifer Smith, CDE 57:16
Absolutely, I think and on a bigger scale. We're also we're all supposed to be a participant in our life, right? health in general, you may have been given good health to begin with, but you're the keeper of that health. Right? It's just like, you're the keeper of the car. If you continue to let the salt buildup on you never wash it off, you're gonna have a rusty car. Well, you're your body's the same way, right? You're the keeper of your health, you got to do things to maintain your health, diabetes, it stepped up a level it is
Scott Benner 57:50
absolutely. And so prepare to transition by getting as much good information as you can, but then at some point, just have to do it. You have to just dive in and do it and then learn a new thing. And then once then you'll be surprised at what else comes from that. And anyway, listen, it's also not to say that you couldn't get an algorithm pump right now and teach yourself backwards. I actually think you can. Sure. I think some people have a harder time with that than others. And I don't want you to be in a position where you're lost and something's happening. And you don't understand why because it won't be any different than a person that gets over Basal on MDI and thinks they're doing okay, but it's not really covering their meals well, right, you know, and then doesn't get hungry one day, and then it's up low all afternoon doesn't understand what happened. Like diabetes. There's no reason that if, if you have an if you have enough information and understanding diabetes doesn't have to happen to you. And I think that's maybe the most important part like I would if it feels like it's happening to you, instead of you are doing something and then something's happening. I think you have to have to look and get a deeper understanding, because it shouldn't just be happening to you. That's all. Okay. Awesome. Thank you Jerry.
Huge thanks to Jenny for helping me once again on the Juicebox Podcast, you can learn more about what she does for a living at integrated diabetes.com Jenny might be able to help you. Thank you very much cozy Earth for sponsoring this episode of The Juicebox Podcast get 35% off your entire order at cozy earth.com By using the offer code juice box at checkout. And don't miss the rest of the diabetes Pro Tip series and the other series within the podcast. If you give me a little gifts, give me two more minutes of your time after the music and I'm gonna tell you a little more about this series and the others But first tips from other listeners. I want to thank everyone who left their tips for this episode on the private Facebook group Juicebox Podcast type one diabetes and the people who left their tips on the public group bold with insulin. This first one is for going from pumping the algorithm test your basil and your ratios before you move to an algorithm. The first few weeks may be frustrating, don't give up. Reach out to people online for advice. They probably have been doing it longer than you. This person leaves a little bit of advice from going from MDI to pump says the first night they kept getting low and didn't remember that they could turn their basil down. We talked about this in the episode having access to your Basal insulin. Next one says Oh, I love this one. Listen to the diabetes Pro Tip series from the Juicebox Podcast Take notes. Here's another one from this person. Some sites have dramatically different absorption rates. We talked about that in the podcast. Here's one for Dexcom. Learn to look at the dots instead of just the number in the arrows. This person says when you're going from just having a meter to a CGM. Remember the CGM is just one of the tools in your arsenal, it's not a full replacement for a blood glucose meter. Use both tools effectively. Don't get overwhelmed. They are just numbers and data. It's not a grade for you. It's good advice to this person says no matter what you're doing, whether you're changing from MDI, to pumping pumping to algorithms, your ratios are likely going to change. And that takes time to figure out. This person says not all algorithms are the same. So make sure you understand which one you have and how it works. Their example here is if you're having trouble with a T slim product, don't use someone's advice from the pod five, it won't be the same. Don't assume that your CGM is always correct calibrated if symptoms aren't matching the number, use finger sticks to make sure other person preaching patience, and says not to make perfection your goal, just shoot for shorter peaks, and more shallow valleys in the beginning and over time, your skills will get better. And those peaks and valleys will flatten out. This person says be prepared when your technology doesn't work. And please don't expect perfection. Another person basil testing, there's a great episode about Basal testing in the Pro Tip series. Here's one that just says don't give up. I like that one. I like this one here. Don't use too many new or different foods when you're trying to figure something out. So stick to meals that you are good at bolusing for that way you remove variables, right, like you know, on MDI knew how to cover this food. So I'm doing the same thing on pumping, what's not working, then you can look at your settings and see what's different. I'd say that's a great one. I like that a lot. Educate yourself on how your pump works. Don't just trust that your rep set it up correctly. It's a lot of settings in there. It's a good one. We were used to coasting high no matter what this is an MDI, person to pumping. And we rounded up way too much on our carbs. When we switch to a pump, it took a few weeks of lows to get out of that habit and trust that the pump knew what it was doing. Interesting. So if the settings are good on the pump, I see what they're saying their settings on MDI weren't great. So they were always just, you know, doing more. But when the pump was set up, well, they didn't need to do that anymore. It's interesting. That's a good one. Here's a great one. Don't just put in settings into your palm, write them down somewhere. If something happens to the pump, you need to have them to put back into a new one. And keep a pen or needles handy in case you need to do manual injections. Even on a pump, you might have to do that sometime. That's very good to your settings in a manual pump may not work in your algorithm. This person talking about a CGM says when you start a sensor start at a time of day when you haven't eaten for a couple of hours. And you're not going to eat for a couple more hours if you can. Evening is good, especially for kids in school so the sensor doesn't run out at school. Oh, that's a good one. So he like you don't want to like put it on. I think what they're saying is you don't want to put it on at nine o'clock in the morning on Saturday. Because then at nine o'clock in the morning, you know, on a weekday it might run out. That's a good one. Don't feel bad about removing a sensor if something's wrong, whether it's causing pain or discomfort because you can always call the company and they'll respond with a replacement. You may have heard leaders or readers, that's not always the case. This person says if you haven't heard that phrase, you will eventually take pictures of your CGM sensor codes and transmitters put the expiration date into your calendar with a reminder and that way it won't sneak up on you. Here's one for going from MDI to pumping make sure the correct factor is calculated using the number, the pump shoots for not the one you were shooting for on MDI. Interesting. So what she's saying I think is if the pump gets set up in the target is 100. But when you are MDI the target was, then your correction factor won't be correct. Interesting. This is funny, I can't read you the whole thing, but it says, eventually, something's gonna go wrong. And your tech savvy husband is somehow going to push the wrong button and deactivate everything. I don't think that's as much advice as somebody who wanted to tell a funny story. Going from a blood glucose meter to a CGM. Don't look at the thing every five minutes for me that led to me overreacting to blood sugars, that may not have warranted a reaction at all. Set your alarms at a useful level. This one's terrific the person who sent this one and use that to guide your decisions rather than checking constantly on CGM. I'm a big believer in this by the way, if it doesn't beep, I don't look, there's a person here echoing this sentiment that blood sugars can be fluid, and that it's possible you can overreact and be the reason it's jumping up and down. I think that's worth repeating actually. When you're going from MDI to pumping, you don't need to wait to do a correction Bolus, make use of the insulin onboard information that the pump has great one, that's a great little tip. There's a comment here with a ton of information for the Omni pod five, I'll tell you there's actually an omni pod five Pro Tip series. Definitely listen to that before you go to Omni pod five. But I do want to add a little bit here from this post. Fluid insulin delivery, like an algorithm has to do suspending and increases and decreases and that demands a different approach than a static Basal. So in a regular manual pump, where you might just say, um, one util an hour all day long. You're making a lot of adjustments throughout the day that you don't realize, because there are times you don't need that insulin at a unit an hour might need it more may need it less. That's why the initial settings on these are so important and you kind of stepping back and watching it work for a while to see where your settings may need to be adjusted. Or maybe the way you use your insulin needs to be adjusted Pre-Bolus etc. This person says that a pump was not a cure all for their problems. And they found it very deflating when they went from MDI dual pump and it just didn't make everything better. That's important, Jenny and I definitely went over that in this episode. But keep in mind, this person says here that your doctor's office might say we don't give a pump till one year or you can have a pump till after you've been on MDI for six months or something. That'll sound like a rule to you when they say it. But that's not really a rule. You can, you can push. This is a reiteration of something we heard before. But when you're going from just a blood glucose meter to a CGM, you might want to take some time to just absorb everything. You don't want to just jump in and start tinkering right away before you know what it is you're doing. You know why you turning this dial on that dial really kind of lived through it for days, maybe weeks, even before you just say, alright, I see a trend here. I know what's happening. This is an interesting one. This is for somebody going from MDI to pumping. They don't want you to forget the tricks, you know, brain like if you see a blood sugar, and it's kind of stuck and it won't move and back on MDI, you want to inject it in a unit, there's no reason why you can't give a unit with the pump. Just because the pump says, Hey, there's still insulin onboard, it doesn't mean that that insulin was calculated correctly, and is really about to make an impact. I think they're saying trust your gut. This one's a little long, but the person says everyone's experience is going to be different. So roll up your sleeves, go into it with an open mind and be ready to dig in and do some problem solving. And don't forget to listen to the podcast, they go on to say when going from MDI to a pump, you really have no idea what to expect, you can only kind of hope that you start out with great settings. But that may not be the case. So many people end up having a poor experience when they switch and then they share that online. And then this person was like scared. That's what was gonna happen to them. But then that wasn't what happened at all.
It was incredibly easy, she said, and his numbers got much better very quickly. So I think the I think the message here is, sometimes people just share bad news online, doesn't mean everything's bad news. Here's a little tip. A pump company puts their pump through the FDA for approval, and they choose a couple of insolence to use in the pump. Those insulins are then approved in the pump. It doesn't always mean that the ones that aren't improved in the pump won't work in the pump. It just means they didn't put it through FDA testing. I want to thank everybody who share those tips and remind you that those people exist in the private Facebook group for the Juicebox Podcast. There are so many other management based series within the podcast. You're listening, of course right now to the diabetes Pro Tip series diabetes Pro, tip.com, juicebox, podcast.com, and in your audio app, but there's also the defining diabetes series, diabetes variables defining thyroid, bold beginnings, ask Scott and Jenny. And we have collections of episodes about algorithm pumping, which we talked about a little bit today, you can find out way more in the algorithm pumping episodes. There's the after dark series where we talk about all the things that people don't usually talk about about diabetes, how we eat mental wellness, there's so much to choose from. And if you happen to know somebody with type two, there's a brand new type two diabetes series for people with type two or pre diabetes. Check them out at juicebox podcast.com. Here's a little feedback from other Juicebox Podcast listeners. After devouring the Pro Tip series, I got my daily average down by 30 points. And I'm excited to continue learning from this all in one resource. If you're struggling with insulin, this is the place to figure it all out. I am so thankful that a friend recommended the Juicebox Podcast to me, and I wish that I would have found it at the beginning of my journey. I have been binge listening since I found this podcast. My son and husband both have type one man, I wish I had this when my son was still living at home. I'm learning and sharing how we're going to get our agencies lower. I've had type one diabetes for 20 years, and it was never well controlled until I started listening to the Juicebox Podcast. I've become bold with insulin. And this podcast is unlocked the solutions to so many issues I've struggled with for years. I can read you these reviews all day. But I would prefer to stop because it seems it's tricky to do this right? I just want you to go listen to the Pro Tip series, find the defining diabetes. If you're new, go check out bold beginnings. All of the information that you could possibly want and need about managing your insulin is in the Juicebox Podcast. Subscribe now in a podcast player like Apple podcasts or Spotify, Amazon music or wherever you get your audio. And don't forget to check out the private Facebook group, which is also free Juicebox Podcast type one diabetes 37,000 members and it grows by hundreds of people every week. What a resource. Please don't miss out on this community.
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#898 Breaker Breaker
Jacqueline's daughter has type 1 diabetes. We talk about school and expectations.
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or wherever they get audio.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends, and welcome to episode 898 of the Juicebox Podcast
I make little notes for myself after I edit the podcasts. And usually my notes are meant to help me record the open to the podcast but I gotta tell you, I didn't understand my own notes. So this is Jacqueline and she's got a kid with type one diabetes. Think they had a problem at school, we end up talking about people's responsibilities at their job a lot. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. Also try to ignore the fact while you're listening to me rant about people not doing their jobs that I did not do my job by leaving myself an audio note that was clear enough for me to make the beginning of this episode just let that irony go past you. Actually if you need to be distracted, go to T one D exchange.org. Forward slash juice box to cleanse your palate. Get there and take the survey finishing the survey helps type one diabetes research it supports the show. It helps people with type one T one D exchange.org forward slash juicebox your mental sorbet before beginning the podcast
this episode of The Juicebox Podcast is sponsored by Omni pod. Of course Omni pod makes the Omni pod five which is an automated tubeless insulin pump. And they make the Omni pod dash, which is not automated but still a tubeless insulin pump. You'll figure it all out at Omni pod.com forward slash juice box My daughter has been wearing an omni pod every day. for over 14 years. It's been a friend in this journey. I think you'll enjoy it. Omni pod.com forward slash juice box will you support the sponsors by clicking on my links or typing them in a browser you were helping to keep this podcast plentiful and free. You're also helping to support the private Facebook group Juicebox Podcast type one diabetes. I mean, technically you're paying my bills and then I do all this stuff and then you get it for free. You understand how commerce works I imagined juicebox podcast.com. All the links to all the sponsors. If you need g Vogue hypo pen, you need a contour next gen blood glucose meter a Dexcom and Omni pod. What else you want to check out touched by type one, you want to get yourself some ag one from athletic greens, or you want some quality bedding from cozy Earth. These are things you'll find at juicebox podcast.com. There are also links in the show notes of the audio app you're listening in right now what I forget what I forget what you're like just start the podcast scout. What are you doing? I'm doing business Omni pod Dexcom contour G Vogue, ag one, the T one D exchange us med that's what I forgot us meds where my daughter gets her diabetes supplies from touched by type one cozy Earth. I think we've got I can't say that one yet. But I think we got a new and common T one the exchange. So I say that I said it. That's it. Oh, better help better. help.com forward slash juicebox save 10% of your first month of therapy therapy. I think we all need therapy betterhelp.com forward slash juicebox. Alright guys, that's it. I appreciate you listening to this stuff. I mean, being completely honest and serious. The podcast doesn't exist without the sponsors. And the sponsors don't come back without you. It's a circle of life kind of thing. If you need one of these things, please click on my links. I'm not saying go buy something you don't want. I'm not saying to go buy something you don't need. I'm not saying to go buy something you can afford. I'm saying if you're getting therapy, if you need to hype open if you want to Dexcom etc and so on. Click the legs.
Jacqueline 3:59
Hi, my name is Jacqueline and I have a daughter living with type one diabetes.
Scott Benner 4:07
Jacqueline. Why do I hear people talking behind your back on what's going on?
Jacqueline 4:11
My daughter actually is an online learning right now she's doing digital school. Oh, I could close the door. I don't know if that would make the echo worse. Let's
Scott Benner 4:19
find out. We definitely can't have a disembodied voice behind us
Jacqueline 4:28
she must have just made it louder because it wasn't couldn't hear before and now I can
Scott Benner 4:33
No it's okay. You You were like hey, I'm Jacqueline. I have a daughter living with type one diabetes. And then I felt like I was picking up half of a CB channel behind me so Okay, so my house sounds like CB radio.
Jacqueline 4:47
Yeah.
Scott Benner 4:49
Do you think people even know what that is?
Jacqueline 4:51
I had a nightmare about a CB radio two nights ago actually go on well being one. Oh god. It's so disturbing. It's so I was so upset. I, I had a dream that I was with. I have a friend who has a daughter, that's my daughter's age that hang out and I dropped me and my friend were like, on this road trip, we're going somewhere. And we were letting a little girls like, go for walks out on their own. And we were like watching them from a distance. And then like, we check in on them, and then we're just letting them walk around in the woods like idiots. And then like, it gets dark, and I realized I don't know where they are. And I have this giant TV radio. And I'm like, calling out on the radio, like, has anybody seen these little girls and, and then this crazy, like, the creepiest, deepest voice you've ever heard comes back on the radio, and indicate that like, he has them. I'm thinking but it was like cracked up like you couldn't tell what he was saying. And then I was like, begging him to get them back to us. And he's like, they're fine. They've already had their milk and cookies. And then I woke up and I was like, so sick, like and upset. And I. That's because, because it's ice cream from the night before it was called Milk and cookies. I think Wait,
Scott Benner 6:09
you had ice cream in the evening before called Milk and cookies? Yeah. I listened. Oh, my God. So had I not like arbitrarily said CB radio, which is a very bizarre thing to say. Then we would not have heard about your dream.
Jacqueline 6:26
Maybe not. No, I don't really it really like messed me up. It was really a
Scott Benner 6:31
wake up sort of like, shock.
Jacqueline 6:34
Yeah, well, it was kind of one of those things were this was like I woke up at like, it wasn't even midnight yet. Like I had just, I hadn't even been asleep that long. And you're kind of in that headspace where you don't even really realize what's real and what's not. And if you're sleeping. So you know, you wake up and you're like, Oh, my God is my kid. Like, abducted and like my child was abducted like this in the in the pit of my stomach. And it was not good. Then I woke up and I'm like, oh, it's it's just type one diabetes.
Scott Benner 7:07
Is that what woke you up?
Jacqueline 7:10
A bit dream woke me up. Yeah, I think because I was just physically so Ill over it. That's crazy. Well, yeah,
Scott Benner 7:17
we were just, we were just talking about dreams. Last night, my son comes up to me and he goes, in your dreams. Do people can you hear people when they're talking? And I was like, why? And he goes, and so at first I thought, well, yeah, I can hear people's conversations in my dreams, right? I don't really recall them. But I hear them. I know that I'm aware of them when I'm dreaming. And then he goes, No, no, he goes, do you actually hear them? Or do you just know that? What they're saying to each other? And I was like, Oh, wow, this is like a matrix question. Like, like, are you hearing sounds in your head? No. You say yes. But I don't think so.
Jacqueline 7:58
Because that voice was so distinctive. Like, I heard that voice that that creepy voice over the CB radio, like I can tell you exactly what it sounds like. Right.
Scott Benner 8:08
But I think what my son is saying is does your brain just create that? That impulse that makes you feel like you heard it, because if you if you and I stopped right now, if we all stop right now, you know, here, we'll do it all together. Everybody's listening. If we get very quiet, and try to picture someone who we knows voice, you can hear it in your head. But that doesn't mean you're hearing sound.
Jacqueline 8:33
Not physical sound. Right?
Scott Benner 8:34
Right. So he's talking to me like this. And I'm like, I'm feeling like, I'm having a conversation. And we're all high. Because he's like, he's like, he's like, can you really hear it? And I'm like, No, and he goes, and plus dreams move very quickly. He goes, maybe you just infer that you know what's happening. Like, you're seeing the images, quote, unquote, but not, but he's like, how would you hear it? It's moving so fast. And and so I was just like, Oh my God, you're flipping me.
Jacqueline 9:01
How old is your son sounds like my son. He's 22.
Scott Benner 9:06
Somebody said it downstairs and it caught his attention. I was upstairs working and I think he had a half an hour conversation with my wife about it before he walked up and asked me so anyway, the at some point during this podcast if it gets weird required for just one second, I'm gonna lean into the microphone and go, Jacqueline, I have the girls.
Unknown Speaker 9:29
It's pretty close.
Scott Benner 9:32
Don't worry, they've had their milk and cookies.
Jacqueline 9:35
Oh my God, that's really creepy.
Scott Benner 9:38
Oh my gosh, anyway, okay. So how many kids do you have in total?
Jacqueline 9:44
Um, I have two biological children. And then I have two bonus stepsons that are older now. So my stepsons are 18 and 20. And then I'm My daughter is 10 and my son is 12.
Scott Benner 10:05
Okay. Alright, so a couple of interesting questions here. Do your stepsons have any autoimmune issues?
Jacqueline 10:12
No. Okay. They're not related. So we're just kind of like the Brady Bunch.
Scott Benner 10:17
Are they not related to the man you're married to?
Jacqueline 10:21
Yeah, they are. But my two children are from a previous marriage.
Scott Benner 10:25
Oh, hold on a second. All right. So there's like when you woke up from your dream last night, there was a guy laying next to you. Those boys are his. Your, your kids are not his so that your kids are his stepchildren?
Jacqueline 10:39
Yes, yes. Okay. Yes. I got it. I got I got like the Brady Bunch.
Scott Benner 10:45
With fewer people. And creepy. Yeah. Okay, so you have a 10 to 12 year old your 10 year old has type one. Yes. As a girl, I'm sorry. Yes, sorry. How about a 12 year old girl or boy?
Jacqueline 10:57
He's a boy and healthy as can be. And nobody in my family or their dad's family has any history of any autoimmune,
Scott Benner 11:06
nothing? No, nothing at all. Nothing
Jacqueline 11:09
or nothing. She did get this was a COVID thing.
Scott Benner 11:14
Yeah, so this is super interesting, because I watch these conversations evolve online constantly. And I can never tell because it's online writing, if it's just people's, like, you know, they're not being specific when they're communicating and writing or if they really feel this way. Because you'll hear people say, you know, I was diagnosed with type one diabetes after I had COVID. And you'll have and you'll hear people say COVID gave me type one diabetes. And I don't know what they mean when they say that. So how do you feel about it when you when you think about it? So
Jacqueline 11:51
what happened with my Actually, both of my kids got COVID After being at school for two weeks, last August. So they both had a fever. And then Bell had like a super light cough for a couple of weeks. Lincoln, nothing. I mean, they really had like, hardly any symptoms at all. And just for to preface this, my kids have never had an ear infection. They used to get perfect attendance. Like my kids are like, I'm a nutrition freak, like we they are no history of any issues whatsoever. And I thought my kids could handle it. Because every news source told me this isn't the kids can handle this, right? Yeah. And and so it was exactly two weeks. It was the day she was supposed to go back to school after she was, you know, quarantined at home. The night before she started vomiting. And I thought it was something she ate. I didn't link it to anything else. I'm like, Oh, she must have had, you know, because she was at her dad's house. So they eat a little different, which is fine. But, like just
Scott Benner 13:01
fine, in case you're wondering.
Jacqueline 13:06
away, I wouldn't do it, but I appreciate everything they do.
Scott Benner 13:09
That's why he lives by himself now. No, no, actually,
Jacqueline 13:13
he's actually remarried as well. And she's fantastic. She's been really fantastic. Anyway, so she had dinner over there. Actually, she started to get sick over there the night before she was supposed to go back to school. And when she started to get sick, I was like, I'll just come get her because I'm her mom. And she used to be with me when she's not feeling good. I'm not biased at all, by the way. So I bring her home and she just is vomiting like all through the night. And on our like four or five. I'm googling like, when do you take your kid to the ER how much? Because I'm in my overreacting is it's probably just a food poisoning or a bug or something. And then I noticed she was breathing kind of heavy. And her and then I'm like, Okay, if your breathing is off, like to me that's emergency room. Like if you can't breathe or you're like she just had very labored breathing. And so took her in. She like had trouble walking from the car to the ER. And I'm like, I'm like, Come on, let's like what's wrong with you? And I like had no idea what was going on. I thought she was just being dramatic because she has a history of of dramatics. And we got in there and oh my God, thank God for this children's hospital. They were just amazing. They pricked her finger immediately. They said they smelled it on her. And immediately they said, Oh, looks like onset. And I'm like, I have no idea what that means, like onset onset. What like what the hell are you talking about? And so, you know, the whole thing happens and this was obviously during COVID. So there was no breaks from it. I couldn't leave the room to cry or to freak out. I was in front of her like the whole time, which was interesting. But anyway, like in talking to the nurses and doctors, the nurses had said, Yeah, we're seeing a ton of these lately. And so while I was stuck in that ICU, we were in the ICU for three days, the last day was education. But I read the entire Internet. I'm a reader, and that's an I. And I found you I had I was posting on Facebook, and I had a Facebook friend that recommended the podcasts. So I was super lucky to find the Juicebox Podcast in the Facebook group. Oh my gosh, that's everything to me. But I read the whole internet. I went to the American diabetes Association, I watched the president of the diabetes Association, talk, give updates. And in one of the speeches that he was talking in, he was talking about how DKA doubled in 2020. Right. So I also have a acquaintance of mine that got pancreatitis from COVID. And I read a ton about the link and so COVID actually directly attacks the pancreas. That's scientific knowledge that that's what it does. The question is and people and I don't really know for sure, exactly. You know how this happened. If if
Scott Benner 16:31
Oh, Jacqueline, you just disappeared again. Or attack Jacqueline. Hold on. For me. That time? Yeah, that time. It definitely wasn't my fault. So what is going
Jacqueline 16:41
on? I
Unknown Speaker 16:41
know it
Jacqueline 16:42
keeps on this computer for living. I never have.
Scott Benner 16:46
Hold on one second. I'm going to try something. But we're gonna try something together. Hold on
If you're a longtime podcast listener, and you didn't know that the ad was coming here, shame on you. For the rest of you. Let's get us an omni pod, shall we? Omni pod dash and or I guess you can get both Alibhai dash or Omni pod five. I'm gonna go to my link Omni pod.com forward slash it's a slash to kind of leads to the right juice box. You know how to use the internet. Okay. Oh, look at this Juicebox Podcast listeners simplify life with Omni pod. I'll accept your cookies on the pod how Omni pod simplifies life for the Juicebox Podcast host. Oh, it's about my daughter. I wrote that so I don't have to read it to you. I know what it says. On the pod five is here. It's the first tubeless automated insulin delivery system on the pod five baby integrated with the Dexcom G six available for people with type one diabetes, ages two and up. It's got smarter, just technology smarter, just technology. What the heck is that? I don't know. I'm not a computer. But I do know this. It gives you insulin it takes insulin away when it thinks you need it or you don't need it. It's automated. Come on, get in the game Omni pod five. Let's do it. You don't want only bad five. I'm not judging you get an omni pod dash you still get all the great stuff that comes with Omni pod. It's tubeless you can jump in the shower you can jump in a lake that's got a weird connotation jump in a lake right? Go jumping on lakes a bad thing. You could jump into a pool. You could take a shower and not have to take off your stuff and then not have the opportunity to forget to put it back on. And then an hour later go last my blood sugar is so high. That does that might happen to you if you have a tube pump, but that is not going to happen with the Omni pod. Why not? You don't have to take it off the jump in the shower or the bathtub. How about exercise? Nope. can leave it on there to still make your adjustments. Let that automation run on on the pod five while you're playing your soccer, lifting your weights or doing the things you do? Even late at night. You know what I'm saying? Older people hmm, of course, no tubing to get caught on, let's say doorknobs. But we know what we're saying. We're not saying doorknobs per se. Okay, sorry. I'm gonna have to bleep that out. alibaba.com forward slash juicebox. Seriously, my daughter has been wearing an omni pod since she was four years old. She's almost 19 it is an absolute friend on this journey with diabetes. If you're using insulin, my goodness, you could use an omni pod
Alright, are you still there? I'm here. Okay. So I made an adjustment here and we're going to see if that helps. So I apologize because it's okay by surprise. And so you what you said was, I'll recap. Okay, you watched the video from the ADA. Right? He said that DK was up significantly. You had a friend you had a friend. Okay. You had a friend who had pancreas haitus after after COVID And you're saying you're saying that COVID goes, but towards the pancreas, which is not something I know about. So um, yeah, so there's a,
Jacqueline 20:11
there's a study on Harvard Medical. And there's some other studies out there that talk about how COVID attacks the pancreas. It doesn't talk about how COVID attacks beta cells, but COVID attacks the pancreas 1,000%. So, my question is, and the question that hangs out there in the universe, if COVID is attacking the pancreas, if your body is under attack, will your body make antibodies? To go towards that place? Because not only do the COVID cells attack the pancreas, but they replicate the pancreatic cells and infiltrate as well. So if that is the part of your body that's causing the problem, can your body create those type one antibodies to fight it? I don't know. Nobody knows. There's not enough research. Yeah, um,
Scott Benner 20:58
so I'm just I Googled while you were talking and came up a couple of things right. So this is from Medscape. It says SARS. cov. Two infection has also been shown to affect the exocrine pancreas manifesting as pancreatitis in 5%. of critically ill patients with COVID-19, as well as enlargement of the pancreas, and abnormal levels of lipids and amylase in seven and a half to 17% of patients now that that's data from pretty recently made 2022. Another one says, What are the most common organs affected by COVID-19 lungs are the main organ affected, however, the virus can also affect others. But then it says, such as kidneys, brain, and liver doesn't mention the pancreas. So it might, for me, knowing nothing, and everyone keeping in mind that I slept through a lot of my high school education and did not go to college. My expectation is this is that for your daughter had antibodies that made it more likely for her to get type one diabetes, and that a virus kicks that process in so my daughter had Coxsackie virus and then got type one diabetes. Right? And
Jacqueline 22:14
got Yeah, and I think, and I'm not saying I know for sure that COVID caused this. But when you look at the statistics for what's happening, either there was just a crap ton of people that were predisposed, that it's triggered like crazy. Or maybe it could be creating antibodies and some people that weren't predisposed.
Scott Benner 22:37
So that's a question. Yeah, it's a it's a valuable question to ask, obviously, my expectation is, is that the first thing you said is what happened? So think of it this way, my daughter was two and she was diagnosed, if I just don't go somewhere with her one day where she gets Coxsackie. Maybe she's not diagnosed till she's six. Right. And it's like, because at some point, you have to get you have to get a virus that has the right mixture, who cares what it is, that will kick you into your type one. But but my daughter always had those antibodies, like coxsackievirus didn't magically make antibodies for type one diabetes appear in her. So it so my point is, is that I think that the population usually doesn't all get sick at once, with a virus. And I think it kind of needs to be a virus, like, from what I've, you know, called together talking to people all this time. So I think we just laid a blanket of virus across the, across the world. And what grows from that, as people with type one diabetes should show their head. They're like, Oh, look, I'm I have type. Yeah, that's how I think of it. I could be 1,000,000% wrong, but that's how it occurs to me. Oh, yeah.
Jacqueline 23:54
And I think there's a good chance that that you're right, too. And I just, I just don't know, and I hate not knowing where you're in any place,
Scott Benner 24:03
aren't you? Because in the beginning of diagnosis, a lot of people torture themselves with this question.
Jacqueline 24:12
Oh, my gosh, I tortured myself like crazy and the guilt for even sending my kids back to school because they stayed home the year before, you know? And then, you know, me and my husband got vaccinated, and we thought the kids would be more resilient. And so yeah, I really, unlike I just should have just waited for the vaccine to come out. And maybe she would, you know, have another 10 years without it or another, however long, you know, and then on the other side of the coin, I'm like, God, I wasted her last year of being healthy sitting in the house.
Scott Benner 24:49
Okay, had any psychological issues stemming? Yeah. Oh, good. I think it's fun for us here on the podcast bad for you. Yeah, so I was talking to somebody the other day, and they were just they had this problem. And I was like, Oh, this poor person. And then the rest of me was like, This is great for this.
Jacqueline 25:09
Logically, logically, I know and people tell me and I know like, it's, it's not my fault. It's, it just feels like parenting through COVID. And now through type one diabetes, I feel like every decision I make I regret or is wrong, or I can't, there is no right decision. And even if you would have made a different decision, that I could have ended terrible, I could have entered the wrong way. You know,
Scott Benner 25:33
I'll tell you what to imagine this. Imagine you get her a vaccine. And she goes back to school and she gets COVID. And she ends up with type one diabetes, you would have been like that vaccine.
Jacqueline 25:47
Oh, and there's a lot of people out there that that that claim that the vaccine gave their kid COVID or XYZ to and you know, yeah. And I'm like, Oh, those people are crazy, but
Scott Benner 26:00
not me. Not me.
Jacqueline 26:04
Well, whatever. Yeah, you really can't, when they really can't, yeah,
Scott Benner 26:07
what it brings up is the uncertainty of being alive. And what happens when you get put in charge of another human beings life and you love them? Right? You know, so now you feel like I have to make, I mean, listen, I'm no expert, but but my kids 22. And I thought we did pretty well. And then there are times when something pops up, and you're like, he's like, this is completely botched. From my childhood. You're like, really, like, you don't I mean, like I say that. My son, my son is older. He's like, he's like, this thing happened. And you guys should have done this. He's got hindsight. And I let him have his feelings. And I yeah, they're perfectly reasonable. But but, you know, he wasn't 26 and trying to figure out what to do with a one year old or something, you know what I mean? Like, like, he lacks context. And and you don't care about context, you care about making the exact right decision, and there's no way to do that.
Jacqueline 27:10
I know that logically, my brain knows that, you know, but it's still hard to get some of those thoughts out of your head.
Scott Benner 27:19
You also don't have all the information ever, like so. Like so my wife for example, through her work has knowledge of the j&j COVID vaccine. Okay, so at the, at the very time that people were like the j&j vaccine is killed a bunch of you don't even that was all
Jacqueline 27:36
going on. Right. That's the vaccine that I got.
Scott Benner 27:39
I was I was supposed to get the j&j vaccine three days after that popped up in the news. And I was like, God, I hope they don't stop me from getting my vaccine. And then, and then they did. And then I was like, oh, then I had to wait. And then you know, as soon as they said, it was okay. Again, I went and got the j&j vaccine, because I was making decisions based off of what I knew. And, and I also had different contexts where I forget the details of this. So please, don't take this next couple of sentences for details. But there were a handful of women who died after having the vaccine. But they weren't. They were in a very specific medical situation, right or life situation. I don't remember. I'm being very honest, I don't remember. But the point is, is that I was not in that medical situation. So I so I liked the idea that j&j vaccine because it was kind of based on older technology, and I liked it. So I'm like, we're going to do this plus, my wife had spent a year sifting through safety data for like, that's, you know, while you were all hiding in your house, my wife was trying to make sure that that vaccine was okay.
Jacqueline 28:45
If you want to know something interesting about that vaccine that I was reading about is people that took it were more likely to faint afterwards. And I I hate needles so much. It's funny, you will never meet anybody that hates hate them. I am very needle phobic I've always been. And so I chose the Johnson and Johnson vaccine because there's one of them. And I also can pass out if I get freaked out or you know, yeah, or sad, or get blood drawn or something. So it's funny that that's the vaccine that people are more likely to pass out in because that's the one all the wimps take
Scott Benner 29:30
it even that's an interesting statement, like you're more likely to pass out if you do this than this. What an and we hear those things as headlines. And then oh my god, then in our minds, like, you know, there's a room a gymnasium full of people getting the j&j vaccine. They're falling over like those sleeping. Yeah, except what it probably means is that, you know, I don't know 100 people out of every million passed out with this one, but with this one, it was 120 to me Yeah.
Jacqueline 30:01
I just think this psychological aspect of it is interesting, like, the types of people that chose that one might be more predisposed to painting or freaking out, you know, the types of people that would willingly sign up to get double the needles.
Scott Benner 30:17
That's so interesting. Yeah, you're getting the shot never occurred to me as being an issue one way or the other. Yeah, I never thought of it that way. But I don't have a trouble with the needle. So it's anyway. Well, anyway, however, no, don't be sorry. Your daughter's got diabetes now. So. And how long ago was this?
Jacqueline 30:36
August 23. So for diversities coming up?
Scott Benner 30:41
Oh, one year she's coming up on. Okay. All right. So diagnosed during COVID. Did you how long did she stay in the hospital for?
Jacqueline 30:51
We were in the hospital for three days. She was when they admitted her her blood sugar was 575. And then her a one C was 8.4.
Scott Benner 31:04
Okay, so your question the day that she was diagnosed? Yeah. Was How long after she had gotten COVID?
Jacqueline 31:14
Two weeks. 14 days,
Scott Benner 31:18
14 days. And her blood sugar was five or 75?
Jacqueline 31:26
Well, 14 days from her fever. Now she could have been exposed a week before that. 14 days from her fever.
Scott Benner 31:34
Okay. I hear you. Alright, I got it. I got it. I'm trying to remember how long I thought Arden had Coxsackie furl a month or so before, even longer than she was diagnosed. Yeah. Okay. Anyway. You stay in the hospital, they let you out. What did they give you when you leave?
Jacqueline 31:59
Oh, they were so great. We had I had bags and bags. I had. Well, she got her little JD are up there. We they gave us like tons of books and material. I actually met with the dietician at the hospital, which was nice. And they did lots of training for me at the hospital. I left with insulin pens glucose meter. So we had Lantis and Humalog. And then keto ketone strips. I mean, pretty much everything we we would need.
Scott Benner 32:38
Okay. I liked how you it was like you were leaving a birthday party and people are like, here take a kazoo.
Jacqueline 32:43
Yeah, and she had this huge like blanket that gave her all these toys that they were constantly like, showering us with it was just great Children's Hospital and, and there was a social worker that came in to make sure we were okay. Like, do you need anything? She got me like a brush. And yeah, they were just amazing.
Scott Benner 33:01
So you you had done a lot of reading while you were in the hospital. So what was your expectation of what living with diabetes was going to be like versus what it ended up being?
Jacqueline 33:13
Oh, at first, it was so overwhelming. It was just, you know, like I said, we're both I hate needles. She hates needles. I mean, even now getting bloodwork it's it's horrible. I, I would I never wanted to. So, at first I'm like, How the hell am I going to do this? Like, how am I going to do this? All the time, multiple times a day. It's just such a shock. Like, it's such a, it just turns everything on its head and it seemed so daunting and so intimidating. And like I obviously like went through so much grief of just how our lifestyle was about to change, you know. Now a year later, it's not that big of a deal. As much. i It's a small, a smaller part of life.
Scott Benner 34:13
Yeah. Does she have did she have a honeymoon?
Jacqueline 34:17
I don't not a well defined one. I don't really understand the honeymoon thing. Because it's, um, I don't know. And she's had she's 10 So she's got like hormones, hormonal stuff is starting. So it's hard to tell like we need to make adjustments sometimes but she never got to a point where like she didn't need insulin or anything like that.
Scott Benner 34:43
Yeah, I was gonna say if you don't understand the the honeymoon then you didn't say it. Yeah, probably not. Right. But that's even interesting that she had a short or non existent honeymoon. So her her needs haven't changed. significantly, in any leaps?
Jacqueline 35:03
Not really interesting. Not really like how you
Scott Benner 35:07
said she has hormone stuff going on.
Jacqueline 35:11
You know, you know that thing when you think you have it all figured out, and then you're like, Oh, I got a couple of days here, we're, we're doing good. And then all of a sudden it changes, you know, she needs she needs half the insulin or twice the insulin. You're like the hell's going on
Scott Benner 35:27
right now? I know. Okay, so how did she handle it? Like, I guess just kind of psychologically and like as a person?
Jacqueline 35:37
I'm at first really, really well, at first it was. She, she started giving herself shots, actually, fairly quickly, she preferred that. She got a lot of attention in the beginning. And she really liked that. And she didn't mind the candy either. So at first it was it was good. It took a little while for things to kind of soak in. Now. She's still pretty. I don't know.
Scott Benner 36:17
I like how you said she doesn't like she wanted to do the shots yourself. And I'm thinking of course she does. Because you're probably holding the needle. Like, I don't want to do this. This is terrible.
Jacqueline 36:27
I mean, I got used to it pretty quickly. I got I really like was able to, obviously a necessity. I compartmentalize and detach myself from feeling anything at all, and just go into like robot mode. So no. But now it's it's complicated. There's a lot of layers there. There's a lot of things we were working on. I started taking her to a horse therapist, which is not a a horse talking to her. But as a therapist that uses horses. My husband says every time I say horse therapist, do you think of like her talking to her?
Scott Benner 37:09
It's funny, I thought opposite. I thought all these poor people can afford a therapist for a person. That's terrible. I knew
Jacqueline 37:20
what's funny is the reason she's going to equine therapy is because I couldn't find a normal one. I you know, I was looking everywhere. And she was asking for help. And she you know, obviously has a lot that she's dealing with and isn't great or comfortable with expressing herself. Like she keeps a lot on the inside. That's and she's always been that way. So I searched forever. I contacted the hospital, I contacted everybody and nobody had any resources that would take our insurance that would talk to somebody her age. And then finally, I was just at this leadership thing. And one of the people that I was going with, he's like, Well, I do equine therapy, and I have an opening and she takes insurance. I'm like, Oh my gosh. So it worked out.
Scott Benner 38:13
How does this? How does this work? Does she just sort of care for the horse and, and ride it. That kind of thing. She hasn't
Jacqueline 38:21
actually ridden the horse. But she will like room it so she brushes it and does like breathing. And then the horse is very in tune to feelings. And so, you know, if you put your hand on a horse and you think happy thoughts, and you put your hand on a horse and you think angry thoughts, the horse reacts differently to your mood. And so it's kind of getting in touch with your own feelings through getting in touch with the horses feelings, and the horse expresses how it feels with different body language and, you know, and the thing that the horse does, and so she's teaching my daughter, you know, see how he does this with his head or how he that means he's feeling this way? Or are we we don't want to make him feel nervous. So it's a lot with, it helps with like anxiety. Yeah, but also just kind of identifying what are your feelings and how to kind of be a little bit more in control of them and identifying them.
Scott Benner 39:19
That seems like either very worthwhile, or somebody's tricking you into paying them to brush their horse.
Jacqueline 39:25
Well, I mean, it's insurance. So
Scott Benner 39:29
I imagine the person right now they're like, This is amazing. These people give me $40 And then they brought my horse for me. And I know right, I tell them I know what it means when the horse looks down to the right.
Jacqueline 39:41
I need to start advertising like vacuum therapy services.
Scott Benner 39:44
Oh my god. I've been thinking the same thing while you're talking. People would feel better pressure washing my siding.
Jacqueline 39:53
I know that that crossed my mind to
Scott Benner 39:56
helping her kind of doesn't matter. Ya know,
Jacqueline 39:59
she really likes it. it it just sucks because it's it's hot. We're in Arizona. So over the summer. She's we can't do we can't do the worst stuff over the summer because it's triple digit temperatures. So yeah, you have to wait until late September to get back into it probably. October,
Scott Benner 40:16
you live somewhere where people aren't supposed to be. Because the temperatures,
Jacqueline 40:21
it's gorgeous. But we do need to be we do need either water or air conditioning, we need to be in the pool, or in the house.
Scott Benner 40:28
It's interesting, isn't it? Yeah. I was just talking to somebody the other day from Canada. And they were talking about how cold it gets. And I was like, move. Like why are you there? And now you're telling me triple digits on like, I don't care how nice it isn't the other times a year to get the hell out of there.
Jacqueline 40:45
Well, I don't know if you can see my Facebook profile. But you can I actually went for a walk at sunrise this morning around the lake, the park by my house and I take I like wake up at 5am and take pictures of the sunrise and it's just it's everything. It's yeah.
Scott Benner 41:03
How hard is it? It's five o'clock?
Jacqueline 41:05
Um, it was what 82 Okay, this morning at 5am. So it's not too bad right now, because it's monsoon season. So we're getting like rains. and stuff.
Scott Benner 41:17
I like when people from different places say things that they think sound normal, like it's triple digits hot and it's monsoon season. You're like, you know, because it's monsoon season. I'm like, oh, yeah, sure.
Jacqueline 41:29
That's just basically when were pelted with like these months, students are crazy. We had two trees ripped out of our front yard that were like 10 years old.
Scott Benner 41:37
You're explaining a scenario where I would run. Like, I gotta go somewhere else where there's no monsoon season, if at all possible.
Jacqueline 41:48
Well, I visited my friends in California a couple of weekends ago. And she gave me a hard time because I had to wear a jacket to the beach. Because I was like chilly. And I like I just I couldn't live anywhere else. Because I you know if it's anywhere around 70 or below, forget it like I'm freezing.
Scott Benner 42:09
I've only been to Arizona once I was in and out very quickly. But it was nice. But I was there to a reasonable time of year. Although, now that I'm thinking of it. When I landed. We had to take alternate routes to where I was going because some of the streets were flooded. Yeah, yeah. So you don't it doesn't handle rainwater well, either, right.
Jacqueline 42:30
Not too great. So historically, there is a history of flooding we had we haven't seen we haven't had anything too horrible in recent history, but Gotcha. Well, the town I live in has like walls built to just in case.
Scott Benner 42:48
You're painting a photo for people. No one's going to move to Arizona after you describe it.
Jacqueline 42:53
So hopefully we're like the fastest growing one of the fastest growing places in the country. So that's fine if people stopped moving here.
Scott Benner 43:00
Only because of the equine therapy industry. Taking Yeah, wow, fire trucks. That doesn't happen very often here. Can you hear that? No, no, my microphone is so good. It, it takes my voice and blocks everything else out. Okay, so she's struggling a little bit. Is that fair?
Jacqueline 43:24
Yes, yes.
Scott Benner 43:25
How does that how does that present itself? Like, what side of that? Do you see? Like I know, you said she holds things inside. She needs help. She's having trouble expressing herself. But what does it look like to you from the outside?
Jacqueline 43:39
I'm getting just reactions that don't match the situation. Sometimes we're being upset and not knowing why. I'm crying and not knowing why sometimes. So and not wanting to do things that she previously wanted to do, she gives up very easily. We tried doing school last year in person with diabetes, that was a nightmare. It was a it was a really hostile situation with the administration at that school. So I didn't want to deal with them again. But I left it up to my daughter, you know, I would do it for her if that's what she needed, you know, but she hated that. I mean, they pulled her out of school seven, eight times, 678 times a day sometimes to check her blood sugar and just refuse to use Dexcom to follow her at all. Like I was so excited when we got the technology and like oh, she could be in class least restrictive environment. And they're just like, which is funny because the school really touts like technology. But they're, oh no, you know, it's gonna make us liable Whatever. So instead of just looking at a screen to see her numbers, they wanted to bring her into the nurse's office, you know, before and after every meal before and after PE and recess, you know, beginning of the day end of the day and you know, and I before and after everything
Scott Benner 45:17
they were finger sticking her like nine times a day when she was wearing a CGM.
Jacqueline 45:21
No, baby, they wanted her to physically leave the classroom and go report to the nurse what her CGM said,
Scott Benner 45:27
why does that matter? I don't understand. Yeah. Instead of the nurse having access to it,
Jacqueline 45:36
yeah. And we donated $400 to the school, so they could get a tablet. And they happily took my money knowing exactly what it was for and then refused to buy one.
Scott Benner 45:46
Oh, are they playing? When
Jacqueline 45:48
I went into questions, I wanted to ask questions. And I talked to the principal for the first time and I had never talked to this person never really met the principal, except for maybe like in the beginning when we had the meeting, but I had never like had a one on one conversation with her. And I went in there to like ask for her help. Right? I I know how to deal with people. I was in customer service for ever. Like I, I'm not like some crazy person, right? And she's like, Oh, we could talk about this in my office. And I was like, Oh, great. I could to try to talk to her. I slipped I talked to her. We sit down. And she was Well, first of all, you need to calm down. And though the first thing she said to me, and I'm like, Oh, she and she. And she was like talking down to me like an angry teacher, like a bad teacher would talk to us. And she's like, every time you come in here, you have an attitude. She said that to me. And I have no I, I had
Scott Benner 46:51
never spoken to her before. I have never spoken
Jacqueline 46:53
to her before. I felt like I was being nice to everybody. I felt I was doing the best I could I I never said a negative thing to worry about anybody. And I brought in baked goods when they asked me to when I brought, you know, gifts at Christmas time. And I'm like, I thought it I know I'm not like, maybe I'm just not a likable person, like, but like she was telling me to this woman was telling me like, she doesn't like me, you know, and I'm and I'm sitting there asking for help for my kid. And she's like, we're doing everything we need to do. And we're not legally obligated to do this, this or that. And, you know, we're doing what we can do to keep your daughter safe. And she was so hostile, I started shaking, and I started crying. And I left and
Scott Benner 47:42
I would have taken I would have taken $400 worth of office supplies out of her office when I left.
Jacqueline 47:48
She followed me into the front office from her office and kept going at me. And I don't remember what she said, because my ears were ringing. And I turned around and I yelled at her. And I said, stop talking you don't know how to talk to people. I yelled at her. And I got in my car. And I was like, a mess. I couldn't drive because I was shaking and crying so hard. I was just there to ask for help. Right. And I was so viciously attacked. And, um, I tried to I went online to try to find somebody that this woman was accountable to is a public charter school. So they're not part of a district. And I couldn't find anybody. I couldn't find anybody to reach out to for help. And I almost pulled my kids out of school that day. So, but I'm like, okay, you know, get your head straight, calm down, cool off. And I did I calm down and cooled off. I sent her an email a couple of you know, the next day, saying like, you know, these are the things you said that made me feel this way. And I would recommend maybe not using this verbiage with other parents in the future. I put it all in writing. And she, you know, she came back and she emailed me back and apologized if that's how I felt. And she said, I just I have a history of going in there and questioning what they're doing. And criticizing them she said, which I didn't feel like was the case at all. So but I'm sorry for asking questions. This is all I'm just trying to help my kid to you know, so
Scott Benner 49:33
not knowing you for more than 45 minutes. I I'm thinking that she didn't like being challenged and they didn't want to expand what they do because then it opens them up to liability and it opens them up to having to provide those services for other people in the future. So
Jacqueline 49:50
yeah, and the funny thing is, is when when Bellwood and she, you know your first year, you're gonna be all over the place and maybe you're all over the place all the time, I don't know. But there were times where she was really high. And there were times where she dropped fast. And those the times that she dropped fast, were not the times the nurse had her check in. So, right, having that extra security to me, is less liability. To me, if you told me no, I'm not going to monitor your daughter, and then my daughter has a seizure, because you're not monitoring her. Right? That's when I'm going to get a lawyer. That's what I'm going to sue you for not doing what I told you needs to be done to monitor her. Yeah. So how is it more liability? Well, to to have that information,
Scott Benner 50:37
the way it's more liability, if you look at it just from their side, is that saying that you'll do it in first that you'll stop that the problem from happening in their mind, instead of just saying like, you know, we'll do our best to monitor this. If by the way, my phone is silence that I don't get a an alarm or something or I walk away from my tablet, and I don't hear that that's what they're worried about is that you then your kid has a problem. And then you say, well, we gave you the tablet, you were monitoring it, how did you let this happen? This is your fault. Like, so it's just it's liability. It's like everybody trying to
Jacqueline 51:12
say things. So common sense that, you know, I understand that there's going to be human error. There's human error when she's with me, I'm monitoring it at home as well. Right? You know, but if an extra set of eyes, I'm sure would have been nice.
Scott Benner 51:28
It's all common sense, right up until somebody can sue somebody, and then everybody hides in the corner and covers there as
Jacqueline 51:35
well. I hope that they get sued for not having it. Like they're going to show me, to me like declining, declining us. Declining, the technology that would help you to keep a child safer, is putting that child in more danger.
Scott Benner 51:49
Yeah. But that, you know, that's a coin flip at schools, whether or not somebody's going to want to follow or not.
Jacqueline 51:55
I know. Yeah. It's which is why, which is why we're learning online this year, because I can't, I can't fight I don't want to fight anymore. And I'm well, and she she chose it to she was tired of it too. I'm hoping by the time she gets to middle school, that she will be self sufficient enough to not need help at all from the NURSE
Scott Benner 52:24
Are there? Are there not other school options for you? Or will she at middle school be in a different system by then.
Jacqueline 52:36
So I could put her in another elementary school. It's funny, I was thinking about putting her in this one that was supposed to have this great nurse and then the nurse quit right beforehand. And it's just the turnover right now is through the roof. And the staffing right now is really bad. So I feel like even if I did find the perfect situation, there's no guarantees that that person would even stay.
Scott Benner 53:00
Yeah. Are you do you work full time?
Jacqueline 53:03
No, I work part time. I teach online.
Scott Benner 53:07
Okay. Is there a world where you? But you were watching though, right? While she was at school? Yeah, yeah.
Jacqueline 53:15
Yeah, I was I was managing from home and I was going in there like maybe once a week and, and it was stressful, because she has a T slim now as well. And she doesn't always respond to her alarms. And so I was having to call the school and just trying to do everything from home. It was just a lot. I was just, it was a lot.
Scott Benner 53:37
Yeah. So because what I was thinking was isn't Wouldn't it have been possible for just like, we'll take these check in times that the nurse wants, and you'll check at those times?
Jacqueline 53:49
Well, and that's why did towards the end of the school year. Because it was getting so out of hand, she was missing so much class. I got with my endo team, and we got a new health plan together that says she has never to go to the nurse unless if she's below 60. Or she doesn't feel good, or she wants to go to the nurse, right? So we essentially kind of fired the nurse. And that's when I started doing everything 100% from home, which again, it's like, it was still a lot. And she's still she's very self conscious about her pump beeping so sometimes she would turn those off. Or if she's in the middle of a project or in the middle of doing something she didn't want to deal with it. I have to call the front office, they have to go get her.
Scott Benner 54:36
How often was that happening?
Jacqueline 54:39
Maybe once or twice a week in the school doesn't
Scott Benner 54:42
have phones. You had to call the front office they had to go getter. They couldn't just call the room and say hey, send Bell Well, I would try calling
Jacqueline 54:49
her cell phone and sometimes she wouldn't answer and the worst was when she was at recess. I tried to get the teacher to hold on to the phone but she didn't understand like how to answer it or whatever like Oh gosh.
Scott Benner 55:02
Again, you do not work for the Arizona travel council or whatever. I'm not I love
Jacqueline 55:08
Arizona but our education system is is is, is it's very, very tough. And in Arizona, even teachers at charter schools don't even need to have degrees or certificates. So. And I went to school for education, and I'm telling you a lot of the teachers with degrees even. So
Scott Benner 55:34
let me tell you something. My mom is in a place where she lives in a place where they're monitoring her care. Okay, yeah. And two days ago, I'm talking to her, and I'm like, how's everything going, mom, and she's like, My blood pressure's high. And I was like, okay, so it was high enough to be concerning a bit high for a couple of days. So what are they doing? She said, Well, they gave me more blood pressure medication. And I was like, okay, is the doctor seeing, you know, they just gave me more blood pressure medication. I said, is that working? She said, No. I was like, okay, so I call the nurse and I say, Hi, my mom's blood pressure has been very high for four days. She's 80 years old. What are we doing? Well, they gave her more medicine. I said, is that working? And she goes, No, doesn't seem to me. And I said, Okay, I said, Okay, so what are we going to do? Now? She goes, Well, we'd like to wait a little longer. I said, Well, why don't we talk to a doctor? And so I said, I think maybe we'd want to speak to her physician who's making the decisions about the medication. Can you talk to the doctor for me? She goes, Sure. And I said, When can I call back to see what the doctor said? She was called back in 24 hours. I was like, okay, that's me saying, I know you're not going to call the doctor. Right. So I call back in 24 hours, I get her back on the phone, and I say, hey, What'd the doctor say about my mom's blood pressure? Oh, you know, I usually bump into him during the day, but I just haven't seen him today. So I haven't spoken to him yet. I was like, Oh, okay. Well, it's been 24 hours. Can you go speak to him? Now? She goes, Sure. I'll call you right back. I was like, great. I'll wait for your call. So she calls back and says the doctor upped her blood pressure medication again. And I was like, Oh, my God. I said, isn't that? And she goes, Uh huh. And I was like, what kind of doctor is he? And she goes, he's a GP. I said, so he's a general practitioner. It's a great isn't. What did the cardiologist say about this? And she starts flipping through. She goes, Well, your mom's never seen a cardiologist for this. Oh, my God, and I go, don't you think that'd be a good idea? She has a pacemaker, say two years old is just went through chemotherapy or blood pressure's up. It's high. It's consistently high, don't you think? And then the woman started covering her ass. The nurse, I was listening to her cover her ass while we were talking, you should probably talk to her doctor. Because I don't know the answers to these questions. I'm like You sure you do you see, or five times a day? You take her blood pressure every time you do No. So she doesn't take her blood pressure and see a problem and go, Oh, I have to help Bev. She says, I have to document this, because that's what keeps me out of trouble. And then I told the doctor now it's his problem. And so I said, Well, we're letting the GP make decisions about this. It doesn't make sense. She was well, I don't know, I'm not aware of his complete training. I said, You think he's a GP? And he's privately a cardiologist and keeping that a secret from everybody. And she and she's like, well, I don't know. You have to call him. So I call him. I say, Hey, I hear about my mom, blah, blah, blah, what are we doing? He goes, Well, I doubled her blood pressure medication. I said, is that working? And he goes, No. And I said, well, she's on a medication for pain. I said, a tiny bit of googling tells me that could cause high blood pressure. Well, she's been taking that for a while. So that wouldn't be it. I said, Are you sure? Why don't you try cutting it back and see what happens? Because if you just take a pill from her from it for a day, and see if maybe her blood pressure goes down? Why don't we try a little bit? Well, I don't think that's it. I was like, Yeah, but why don't we try it anyway? And he goes, Okay, I'll look at that. And I'm like, All right. And I said, and what about our senior cardiologist? And he goes, Yeah, she hasn't seen a cardiologist for this. And I went, do you think she should? And he goes, here, that's a good idea. I'll set that up. Yeah, that's a good idea. I'll say at least he didn't fight you on it. It's because I'm like, were you sat in the office, you're like, she's yelling at me. I was like, and you kind of you kind of crawled up. That's when I blossom. I'm at like, you guys know me like 47% You know what I mean? Like, I love being in fights, like this is the best thing that ever happened to me.
Jacqueline 59:41
Normally, I'm creating a confrontation. I don't know what it was, I don't know if it was just the subject matter of it, you know, and the it being about this and just just how overwhelmed and taken off guard and like I I've never been treated that way by anybody that's worked anywhere and to have the principal of your child's school treat you that way. I mean, I was in just such state of shock.
Scott Benner 1:00:07
Yeah. I I'm still pissed that we don't haggle over car prices anymore. We're buying cars. So it's one of my favorite things to do like every five years. Well, that's
Jacqueline 1:00:15
what I used to do. I was a sales manager at a Ford dealership. And I worked for Ford for four years. Then it was an internet manager at Nissan for two years. And I loved negative. It's my favorite. Yeah, it's so fun to negotiate and haggle. And
Scott Benner 1:00:33
we were young, we left and my wife's like, we argued for three hours and saved $1,000. I was like, you know, it's amazing, right? She's like, did it matter? And I was like, I don't know, I had a great time. Making
Jacqueline 1:00:43
$333 an hour. I know, he made $333.
Scott Benner 1:00:48
I'm like, I'm killing it here. You know. But so so then I so but think about this. The no one has my mom's best interest at heart in this story, except for me, right? And everyone is willing to do bare bones, basic, whatever it is, one nurse said to me, I swear to you, well, your mom is older and she has heart problems. And I was I said, Yes, she goes, heart problems don't get better, they get worse. And I went, okay.
Jacqueline 1:01:19
So to get better.
Speaker 1 1:01:21
Let's just say she's right. We're done. Are we done with her now? Like, why are we going to, we should just push her in the dumpster? Is that is that this like, you're not gonna try to do something? Because like, she just spent the last year of her life, defeating cancer. And now you're gonna tell me her blood pressure got higher, and oh, well, it's over now. Like, she actually said it to me in that tone. Well, like this, you know, this isn't gonna get better. And I was like,
Jacqueline 1:01:46
I'm like, probably She's probably just so jaded. She, she,
Scott Benner 1:01:50
she's the one in charge. She's, she's my mom's frontline defender, you know? And then I get to the doctor, and he think about this. If my mom seeing a cardiologist was a good idea, why did I have to call and say it? Because it was not going to happen if I didn't call? That doesn't make any sense, right? Yeah, right. So you think that that principal is going to put her ass out in the sunshine for you? No way. Not in a million years. If your kid has to go learn in her bedroom for three years, so that she keeps her job, then that's what's going to happen. That's it. That's what happened. I'm sorry. I'm sorry. I don't see this as being cynical, by the way. And I'm certain that there are plenty of people. And
Jacqueline 1:02:35
that's not the only layer to this, either, is she's really struggled in math. And I didn't realize the extent of it until COVID hit and I actually saw how she struggled in math. Yeah. And that's one thing she would cry about a lot last year. And when I would go to her teacher, I would get nothing. And so I like she needs help in math. And you know, a lot of kids when they're bad at math, it's like, okay, just don't get a job that has math in it. But it's like, no, you have to understand how numbers work to manage your health care for the rest of your life. Like you can't just not understand how numbers work, you know,
Scott Benner 1:03:14
exactly. And also not for nothing. But bailing on a 10 year old as unhelpful around math is silly. Like, well,
Jacqueline 1:03:20
and that's not what happened. What happened is I would call and ask how she's doing. And the teacher would say, Well, I don't know, she doesn't really raise her hand. She doesn't know she's struggling, because she doesn't raise her hand and ask and tell her that she's struggling. And I'm like, Okay, well, you know, she's not able to do any homework, and she's crying, but she feels like she's stupid, a sweat in class, and everybody else gets it, and she's not getting it. And I was like, I think she has a learning disability and math. And I said that repeatedly. I think she has a learning disability. Well, we don't really have any, any inner any programs to to do anything about that. Well, it wasn't till the end of the school year where somebody told me no, you have to put in writing, I'm officially requesting that she gets tested for learning disability. Okay, I send them an email and in writing, but it was too close to the end of the school year. So like, we'll do it. But when school starts, I'm like, Oh, great. Do
Scott Benner 1:04:10
you see that if we take that little parable that you just told me and pull out the words math and put in high blood pressure and a couple of other things? It's the exact story about me talking to the doctor about Yeah, right.
Jacqueline 1:04:22
It's just it's just, it's just complacency. And I'm, I'm sorry that, you know, I'm, that's, you know, I just I have higher expectations of people. And it's,
Scott Benner 1:04:33
yeah, my point isn't that it's, it's specifically in healthcare, or specifically in education. It's specifically in people that are like, listen, there's a process here. I am following the process. You have not written down the words you just said to me, and I'm not legally obligated to tell you that if you write it down, that we can get our help, or I don't know or whatever. And so it's a checklist.
Jacqueline 1:04:56
It's well there's there's there's two kinds of people. There's people that go to work and they go with emotions and they collect their check. And then there's people that are passionate about what they do and take pride in their work, and are there to really do the right thing and be helpful. And unfortunately, in my daughter's case, she's really been experienced to that first type of person in education, and health care. She's been very lucky, right? You know, and I could be here telling you the opposite story. She could have fantastic, you know, school and horrible hospital. And there's people with that, too. But in this case, we've had the complacency on the school side, and I don't even want to roll the dice to deal with that, again, because I've done so much I started reading again. I know she has dyscalculia dyscalculia is math learning disorder. That's about as common as dyslexia. But it affects a certain part of the brain. And I've been with, I listened to every podcast, and I've read everything I could about it. And it explains why she didn't learn how to ride a bike until she was nine. It explains why she has trouble understanding how time works, and how money works. And all this other stuff, like with numbers are really difficult for her to comprehend. And so her online schools gonna be testing her for dyscalculia. But, again, after my research, I'm like, Okay, this is, I'm so relieved. I'm like, Oh, my God, I can we could actually do something about this week, there's actually like, a try. There's actually, you know, processes, we can, you know, combinations and tools to use to help people. And there's a lot of adults this that, that suffer from dyscalculia that but nobody knows about it. They just feel like they're, they're dumb, and they're not.
Scott Benner 1:06:45
You know, how money works is one of the signs that I might know a lot of.
Jacqueline 1:06:49
Yeah. I love but it's sad. I mean, because my daughter is she's very, very bright. And she reads like a fish. She reads all the time. And she writes all the time. And she's very intelligent. But when it comes to numbers, they just, her brain just doesn't process them. For everybody else. And, and with diabetes, that's scary to me, you know? So like, she needs to understand number concepts.
Scott Benner 1:07:18
I'd also like to see her have a little savings when she's older. That'd be nice, you know?
Jacqueline 1:07:23
Well, it's not necessarily about like managing money. It's more so like calculating change and understanding amounts. And really like that
Scott Benner 1:07:31
time, how does time fit into it?
Jacqueline 1:07:33
Well, basically, especially like second through fifth grade, that's when kids are learning like all these different number models. So you know, you count in base 10. But when you when you do time, you're in base 12. You know, and then when you're talking about dollars, you're in base 100. And you're learning about all these different measurements, right? And a ruler is 12 inches, and there's 30 days in a month, and there's 12 months and a year, and I'm just kind of getting to remember all these different base value systems is really tough to
Scott Benner 1:08:10
to for some people, it just happens. And then for some people, it doesn't, right, okay.
Jacqueline 1:08:15
It's a physical brain thing. We're like a certain part of their brain on one side isn't communicating, you know, so in these people, one of the podcasts they listen to, they were saying, when you give these people calculations, when they try to do calculations, the language center in their brain lights up. And so the math center, so super interesting. It's just like, it's a different, different way of thinking.
Scott Benner 1:08:41
Now, listen, everybody's not going to think exactly the same way. But you could have the basics and somebody could help you, especially when you're 10 years old. That just makes sense. So I you know, I don't I listen to your making the sound like I can't even make fun of Canada anymore. This is what Arizona is.
Jacqueline 1:08:59
Like, there's it's not it? Well, you know, it's everywhere. And there's there's there's great schools, I'm sure we're in Arizona, there's great schools in Arizona, and there's horrible schools in Arizona, and there's great schools everywhere and horrible schools everywhere, I'm sure except for maybe some places don't have poor schools because everyone there thinks education is important. But here Oh.
Scott Benner 1:09:22
All right, Jack. Well, listen, let's start talking about whether or not we got to everything you want to talk about. So I'm gonna look, you've said some things in your notes that have not come up at all. Yeah, so wait a second. You've recently got married?
Jacqueline 1:09:41
I got married in April.
Scott Benner 1:09:43
Oh, okay. All right. That is very recently.
Jacqueline 1:09:46
Yeah. Yeah, yeah.
Scott Benner 1:09:48
So there's so there's that that that must be difficult for kids to like. I mean,
Jacqueline 1:09:53
well, we were already living together for a few years before that. So it wasn't really too bad. It was just a party didn't really change our lifestyle or anything.
Scott Benner 1:10:03
Okay, I understand. Alright, that makes sense. All right, well, then let's let me ask, is there anything we haven't talked about that you wanted to talk about?
Jacqueline 1:10:12
That you have been we haven't talked about was the custody thing? And
Scott Benner 1:10:20
how well how does custody work for you?
Jacqueline 1:10:24
Ah, so, right now it's kind of 5050. With school being back in session, it's 5050 for my son, who's in middle school, and then for my daughter, it's, she's here everyday during the day, and then she's with him three to four nights a week. So I, my daughter's here a lot more.
Scott Benner 1:10:49
How does how does? How was the custody issue with the diabetes.
Jacqueline 1:10:53
So my ex is a recovering alcoholic. And he. So he's been, he's been doing great for a very, very long time. So but it's just kind of one of those things where once you have that, in you, it's like any addiction, right? There's always a chance of something happening. So when when my daughter was diagnosed, my ex was already going through a lot with his he had family members. He actually had a family member that went into the hospital the day before. belted my daughter did. And he had another family member that was having that he needed to help with because the other family members in hospital. So he had a lot going on. And then the thing happened with my daughter. So I was really worried for him that, you know, that could trigger something. And then about a month after. So it's so for me, like as a mom, like even before diabetes, there's just kind of always this like, like if something happens, like if this if his wife were to leave him or if something were to happen to his parents, like I was worried like he could start again. And what happened was,
Scott Benner 1:12:17
yeah, how does that impact like day to day stuff?
Jacqueline 1:12:22
Well, it wasn't well. So his wife, like I said, is amazing. And she handled a lot of the diabetes stuff, especially at first when he wasn't really able to process it because he was going through a lot. But about a month after she was dying. She went on vacation, like she left for the weekend, and left him home alone with the kids. And I got a phone call from the kids crying and terrified because he was very intoxicated, and they didn't feel safe. And so I had to pick them up and file a police report and do all this stuff. And my son had to give my daughter her Lantis shot, which he had never done before.
Scott Benner 1:13:11
Oh, Jacqueline, you broke up.
Jacqueline 1:13:14
It's not that she wasn't under stupid. She can. Like she could be thinking six and right a nine.
Scott Benner 1:13:20
You broke up again, your your son had to give your daughter Lantis. And
Jacqueline 1:13:25
yeah, and my you know, my daughter isn't, even though she likes to give herself the shot, I always want to double check that it's the right dose, because sometimes she can think one number and write down another number. So she can mix up numbers very easily. And my son has never done this. And I wasn't even sure he knew how much to dose her. So that was happening. So I had to go pick them up. I was actually at my parents house, we drove across town. I had to file a report and go back to court and get more testing done. And then he had to do some, some testing. So and he did and he went through everything and he and he got it back together. And she's his wife is like, I mean they're doing the best that they possibly can. And I can't and I'm grateful for that. But it's just it was just some an additional little trauma that she endured. So they've endured some she's endured some trauma. Yeah. So that's just a little it's kind of in the back of my mind if if she's not there will be take advantage of the situation and give in to those impulses.
Scott Benner 1:14:44
So it's kind of scary. That sounds scary.
Jacqueline 1:14:47
I mean, diabetes is scary. And I'm just and just as a mom, I don't know if all moms are like this but or parents are like this, but there's just a certain level of paranoia that I always have a certain level of like Worst case scenario with them that I always am, you know, is wondering. So it just kind of adds to that a little bit.
Scott Benner 1:15:12
I think I understand. Yeah, it's a rough situation. Yeah. I mean, even on your son who all of a sudden got thrust into like, I'll I guess I'm gonna give her this shot, you know, is uh, I mean, I'm it sounds like they took care of it, but the circumstances make it. It's not a triumphant feeling under those circumstances.
Jacqueline 1:15:33
Right? Yeah. That's yeah. Well,
Scott Benner 1:15:38
alright, Jacqueline, listen. I don't want to say your life to show but it's not great.
Jacqueline 1:15:44
I have a great life. Wonderful. I'm, I have a wonderful, wonderful kids, I am madly in love with my husband. I'm, I'm grateful that I have the opportunity to be here with my daughter, and I don't have to keep fighting with the school while I'm at a full time job. You know, so I have got a lot to be grateful for, though, for
Scott Benner 1:16:03
sure. No, I was teasing. There's and who wouldn't be somebody about that? I just I was like, it's just it's a heavy conversation. Get it? I mean,
Jacqueline 1:16:11
yeah, yeah, it is. It's
Scott Benner 1:16:16
because especially, I mean, listen, the alcoholism aside, if, if a couple of people in your life just wanted to do a slightly better job, or be a little more valuable to the people around them, the most of these big problems you have just wouldn't exist. And it would take such a tiny bit of effort on their part to, to remove a lot from your shoulders and from your daughter. And, and everything, you know, and it's, that's what's frustrating to me, is
Jacqueline 1:16:49
Oh, yeah, if, oh, if she was able to go to school, I would be teaching in the classroom right now. Right? Right. It's just so you're in Arizona, where we have no teachers in the classroom. You know, there's such a shortage here, everyone's desperate for teachers. I can't be there. I can't teach in a classroom right now. Because my daughter has to come first. You know, if I knew she was safe at school, and they were watching her, and I could trust them, then I could be teaching in a classroom. But I'm not.
Scott Benner 1:17:19
It just doesn't seem like it would take that much for that to happen. You would think, yeah, it's a little bit of will, that's all like the will to do it. And, and that's most of it, I think they would find that the actual effort on their part would actually would go down, not not up, like, like actual effort put out would go down, safety would move up.
Jacqueline 1:17:43
And they have they had for type one diabetics in the school. So they had four kids doing this. So you know, multiply the number of nurse visits by four. And that's how many times she had somebody coming in interrupt or when all she could have put them off for on the tablet, and looked at the screen.
Scott Benner 1:18:01
I wonder if I wonder how much of it is, is job protection of like, well, if these kids don't come down here, then what do I do? Like I wonder if that ever popped into anyone's head? Well, there are
Jacqueline 1:18:13
two there were actually two nurses and one of the nurses was really great and open to it. And then the other nurses. Oddly, oddly clinging to their odd like clinging to this more. Yeah, and it's unnecessarily. It's like, it's like government, right? Like, like, like, Why do you have to make things more complicated difficult than they have to be? Like, just just make it easy on yourself? It sounds like the one there's a technology.
Scott Benner 1:18:44
Yeah, it just sounds like the one nurse is stuck in the way they do it.
Jacqueline 1:18:48
Yeah. And she and she took it. Oh, gosh, I can't tell you this. She said it's so personal. You know, stick is so personal when I wasn't happy with with the way they were doing it. Like she's missing too much class, she I you know, I want I would much rather her be remotely monitored. So she could stay in class. She's healthy, you know, and she she took it very personal. And after that confrontation happened with the principal. The next day, she didn't let me in her office, she picked her head out to talk to me, but the door closed around her head. And then like she was really hostile with me for the rest of the year like so much so because my son used to meet me at the nurse's office. He goes why is the nurse so mad at you? Like she was openly like yeah, like junior high level like junior high level like I can't stand you I'm not going to give you eye contact or smile in your direction. I'm going to frown and look in a different direction. And I I just It's just It's so wild to me like I don't I've never seen adults behave that way in any professional, any setting. I just
Scott Benner 1:19:57
that's it's incredibly unfair. It In the end, it's just incredibly unfortunate luck. You know, just bad luck that those are the people you ran into. Yeah, so I'm sorry. All right, Jacqueline. I appreciate you doing this very much with me. I really do. I I hope you had a good time even though we talked about some bummer stuff, but but I thought it was. I thought it was good conversation.
Jacqueline 1:20:20
Yeah, it's fun. Cool.
Scott Benner 1:20:23
Hold on one second for me, okay.
Well, Jacqueline did her part, didn't she? That was wonderful. And you know who else chipped in Omni pod Omni pod.com. Forward slash juice box, get yourself the Omni pod five or the Omni pod dash. It's up to you. You get to choose. But whatever you choose, choose it through my link, Omni pod.com forward slash juice box. I got a bounce in my voice. I'm getting on a plane tomorrow to go visit my daughter for a couple days for Parents Weekend. So I'm kind of excited. Anyway, that's neither here nor there. What else? Oh, wow. I gotta thank you for listening, of course remind you to tell other people about the podcast. If you're enjoying it. I mean, if you really love it, leave a five star rating and a beautiful review. Wherever you listen. Don't forget to check out the private Facebook group Juicebox Podcast type one diabetes. Oh, you know what else to hold on? If you know some people with the type two diabetes, I just put out a great series about type two. Can you please let them know about it? We're trying to spread the word. So all I'm asking you to do if you don't know where to find this information, fair enough. That private Facebook group under the feature tab will have a whole list. And gosh, I want to say yes, here it is. You go to juicebox podcast.com. Click on the top type two diabetes. There's a whole menagerie there. And Azure, you have information for people who have pre diabetes, or type two. Thank you so much for listening. Thank you for sharing. I'll be back very soon with another episode of The Juicebox Podcast. Hey guys, just jumping in to remind you that one of our sponsors BetterHelp is offering 10% off your first month of therapy when you use my link better help.com forward slash juicebox. That's better. H e l p.com. Forward slash juicebox. Better help is the world's largest therapy service. It is 100% online boasts over 25,000 licensed and experienced therapists and you can talk to them however you want text chat phone or on video. You can actually message your therapist at any time and schedule live sessions when it's convenient for you. Better help.com forward slash juicebox save 10% On your first month.
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#897 Hey Bird
Sian's child has type 1 diabetes and they live in Scottland.
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+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends, welcome to episode 897 of the Juicebox Podcast
Andre show I'll be speaking with cn she is the mother of a child with type one diabetes. She's from Scotland, and she's delightful. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. If you're a US resident who has type one, or is the caregiver of someone with type one, please go to T one D exchange.org. Forward slash juice box and complete the survey. completing their survey helps to move type one diabetes research forward. Your simple answers to simple questions are going to do it. That's all you need to do. Just answer the survey takes like 10 minutes T one D exchange.org forward slash juicebox help type ones help yourself. Help me complete the survey. In fact, if you need anything that the sponsors offer, using my links is a big help. It really is juicebox podcast.com. All the links are there, and they're in the show notes of the audio app you're listening in right now. Just click on the links or type them in a browser to support the podcast. This show is sponsored today by the glucagon that my daughter carries G voc hypo penne Find out more at G voc glucagon.com forward slash juicebox Today's episode is also sponsored by Dexcom. And of course they make the Dexcom G six and brand new Dexcom G seven continuous glucose monitoring systems. We just got an email from us med yesterday that Ardens G sevens are on the way she'll be making the switch at her very next CGM change. You good to dexcom.com forward slash juice box.
Sian 2:10
My name is Seon. It's a bit of a funny name. I know so it's a Seon and I live in the Highlands of Scotland in a very small village and I have four children. So life is very busy. My eldest is 13 I then girl I then have identical twins Macy and Darcy Scarlets, the eldest Maisie and Darcy. They are 11. And our fee is four who has diabetes. Maisie has diabetes, one of the identical twins
Scott Benner 2:42
are 11 years old. Yes. Identical. infers that her sibling is the girl, right?
Sian 2:49
Yes, Darcy? Yes.
Scott Benner 2:52
All right. I got it. Here's my first question. If you're from Scotland, why can I understand you?
Sian 3:01
Okay, so I live in Scotland and my husband's Scottish. But I'm from England.
Scott Benner 3:05
See, I thought you sounded awesome. I was like, Wait, what's going on? And why is she so clear?
Sian 3:10
I don't sound Scottish at all. And I've lived in Scotland for over 20 years. And if someone asked me to even attempt to do a Scottish accent, I wouldn't have a clue. I just my accent hasn't changed in the slightest from living up here. I I'm not good at accents.
Scott Benner 3:26
When you when you first met your husband, and you were around a mixed group of people and say some of them were like American English speaking. And your husband started speaking. Did you think no one understands him?
Sian 3:38
No, I always understood him. He doesn't have a particularly strong Scottish accent. But I can remember bringing him home to my mum and my sister was there. And they would just be saying, What's he saying? What's he saying? I say well, don't ask me just speak to him. Ask him to repeat it. They couldn't seem to understand him, but I always could. He's quite gentle accent.
Scott Benner 3:59
But you've heard me talk about my brother in law, right? No, sure I have my brother in law is from Scotland. Okay, and I don't understand a word he's saying most of the time.
Sian 4:11
There are some some areas of Scotland that I really, really struggle.
Scott Benner 4:15
And at the end of his statements, he often goes I which I don't know what that means is Oh, and there's like a lot of like, grunting but it's like pleasant Scottish grunting it's not, you know, it's not like it's not like German or Russian growling you know what I mean? It's just sort of like, it's like, he goes, it's like Bing, bing, bing bing like this. And he and I hear a word. I'm like, Oh, he's talking about the economy. You know? And I just start keyword listening for words about money and inflation and things like that. We're about since Scotland dizzy from I wish I knew. I'm sorry. He lives in Pennsylvania. He lives in Pennsylvania now, but because not for a split second. gotten rid of any of that accent. And I just watched him Talking and, and his face is lit up. Like he's making points and gestures, you're smiling and like nodding along and he's like, oh, and he thinks we understand this. And it's possible. He's living a completely, like muted life like, and he doesn't know it didn't he mean like, it's almost like, it's almost like he's speaking in a voice isn't coming out, but he hears it in his ears. And he believes everyone else hearing it. Just like yeah, you put your hands on his shoulder like, and then I and I'm like, yeah, and then it's over. I could have just agreed to like, wash his car. Give him $1,000. Like, I don't even know. I'm just like, yeah. I'm glad you can understand your husband. That's nice. Yes. Okay. Yeah. All right, would you? Where did you meet this boy? Why did you get drugged to Scotland?
Sian 5:52
Well, we met in Oxford. So we're both at university in not at Oxford Oxford, Oxford Brookes, which is another university in Oxford. And we met through a mutual friend there. And then slowly, he has moved me further and further, under the one CI, like, seriously, we were in Edinburgh, which is quite, quite central. And then he got me to the highlands. He's actually from Thursday, which is as far up as you can possibly go. And that's only an hour and a half from us. But I am not going any further up then than I am. Because everywhere. Even now it's an hour to the closest cities, the closest airport cinema, you know, any of the big shops is an hour. From Thursday. Oh, it's two and a half hours. So no, I'm not going any further.
Scott Benner 6:44
I think you know, you're in trouble when they're considering filming Game of Thrones where you live? Yeah, exactly.
Sian 6:49
That's it.
Scott Benner 6:51
I have to tell you, you just made me laugh. Because you're like we met at Oxford, then there was like a pause. You went? Well, not Oxford, Oxford, like, like it was it was almost like you said, Oh, we met at Harvard? Not the one you're thinking of though.
Sian 7:06
I always feel I should clarify. Because otherwise it sets up expectations.
Scott Benner 7:14
I'm talking to a brilliant person who's lost in the woods. And you know, then you're like, No, not that Oxford. A different one, not when you've heard of. It's like an annex. Anyway, so you guys are I mean, you have the background, right? Like we have a Scottish background, we have an English background, there's no surprise here at all that you have an autoimmune disease in your family. So how many of your family lines
Sian 7:47
we have no other type one that we know of, at all in the family. So it was a big surprise when Maisie got diagnosed. But it's not uncommon in the highlands. So there is a lot of type one, and that just seems to be increasing and increasing and increasing. scarily fast at the moment. But in our village, which probably has about 400 people, there is for type one children. So on a bus of 24 of them have got type one is not
Scott Benner 8:26
Yeah, they'll be able to take over and another five years.
Sian 8:30
The strange thing about it is that they don't actually talk about it. My eldest, Scarlett says that the siblings talk about it. But the actual type ones, one of them might say to the other, oh, what are your bloods today? Or right now? And they say, Oh, I don't know. 5.5, or whatever, I put a table up so I could quickly actually,
Scott Benner 8:53
you just reminded me, I don't know why your accent didn't get me to open up the conversion chart.
Sian 8:58
But so so but it's a it's a Honduras. And that's really it. Whereas I thought that they would communicate more about it. But I quite liked the fact that they don't talk about type one all the time, because it means it's not at the forefront of their mind. You know, they're they're just normal kids who have type one, but they don't need to talk about it all the time. It's lovely for the parents. You know, I've got several friends in the village now who we can support each other. But the children don't tend to stress about it that much.
Scott Benner 9:31
I guess if anyone ever has a seizure, they'll probably get stabbed multiple times with different needles.
Sian 9:36
That is exactly. You know, I my husband and I had to fly down to London for a funeral a few months ago. And I had to, I left, left all the children here and a friend was looking after them. And I said to him, do not panic, you know, well do panic if Maisie she's never had to before but if suddenly she has a horrendous hyper Oh, and she needs to have that orange injection because we still have that one. Don't I'm not going to show you how to use it call 909. But just run to any of these three people someone will be and they will come and do it for you, you know, there's always someone around that can offer some support. So it's quite comforting to have them near.
Scott Benner 10:21
You know, when you say your village, in my mind, they're like, I don't know, round structures with straw. And a little, like a little, I don't know, there's like a, like a water collection in the middle of town. And you're all within like 40 yards of each other.
Sian 10:41
Well, did I. I mean, the roads are quite narrow, and it's almost like a grid of roads. Stone cottages really?
Scott Benner 10:52
I think there's no old woman like tanning leather outside right now or something like that?
Sian 10:57
No, currently. No, we're just this tiny little village right next to the sea.
Scott Benner 11:02
That's nice. That sounds very nice, actually, except for this nice, cold. There.
Sian 11:07
It is. Yeah, it's frustratingly cold. You know, my mom is in Essex. And she'll be roasting and read Love. We really do love the summer just in France. And it was so lovely to have some heat. And up here will be freezing. I'll have the fire on and they will be literally melting. It's quite. It's quite annoying.
Scott Benner 11:27
Okay, so what about other autoimmune stuff in your family? Celiac, or? I don't know.
Sian 11:34
No, the only thing that my granddad and my mom do have a little bit of is psoriasis. Is that autoimmune? Is that something that you've mentioned before? Psoriasis? Skin? Yeah. Yeah.
Scott Benner 11:46
What about IBS? No. Okay. Well, she really is lucky, isn't she? Yes, sir. Is is an autoimmune disease. But does the CDC, the CDC says it is? So it is?
Sian 12:01
Yeah. That's really it. Certainly the we're aware of. So it did come totally out of the blue when we're Maisy was diagnosed.
Scott Benner 12:14
Wow. That's crazy. How old was she when she was diagnosed?
Sian 12:17
She was nine. So it was right at the beginning? Well, it was it was just two years ago. On Monday, she had her second diversity. So it was in the middle of lockdown. And her behavior just ah, it just hadn't been right. She couldn't concentrate couldn't focus. She was agitated. And you know, now I've just have such horrendous mum's guilt because we'd go for a walk or go for a bike ride. And she was so slow. And they're all very sporty. So I couldn't work out why she was suddenly lagging behind. So you know, I say come on lazy. Stop being so lazy. What's wrong with you? I'm going to take you to the doctor's, you know, there's something going on here. And she says, Oh, no, I don't know. But she just she just wasn't right. And then just before they went back to school, I was getting them ready to, you know, sign right in the shower, etc. And I walked in the twins at that point, showered at the same time. And I walked in and looked at them. And I said, oh my goodness, what's happened to Maisie she was skin and bones. It was It was awful compared to Darcy who just looked like this strapping, you know, beautiful, healthy child. And then her identical sister, who was suddenly just shriveled. And I was just like, basically on the scales. So she weighed herself and then I got Darcy to weigh herself amazing. had lost a stone, which is just over six kilos is that way.
Scott Benner 13:54
I love I love it that you translated it to another nother measurement that I don't know.
Sian 14:00
Okay, 14 pounds. She lost. She lost a fair bit of weight. And I got Darcy on the scales. And then I texted a friend who's got identical twins and one of them ever put on masses of weight and or lost lost weight? Or has there ever been a big gap between them? And she was like, No, you know, really only a couple of pounds. Oh, this is odd. But I persuaded myself it was a growth spurt that Darcy must have had and she'll Maisie hadn't you know, I didn't realize I hadn't weighed them. So I didn't realize that she had really lost the weight. I was just like, this is very odd, but I kept explaining it away. And then they went to school for the week. And then at the weekend, it was a Saturday. And she the three girls went off on a club. And my eldest came home and I can always remember she just walked into the kitchen, banged her hand on the table and said right I think that maybe he's got type one diabetes as it were an earth have you got that from? He said, well, she's constantly going to the toilet. We had to she had to go and go to the toilet this club, but three times she drank my water, Darcy's water, her own water. She's lost all that way. You need to phone, NHS 24, which is like the out of our number that you can ring outside. Don't be so silly. And I phoned my sister. My sister said, Well, I have been thinking about type one as well, because a friend of hers had been diagnosed. She said phone NHS 24 Do it now. I was like, No, I just take it to the doctors on Monday. You said no, no, no, do it now. I phoned them up. Thankfully, they took it really seriously and said, Yep, you need to take her to the hospital, just to the local hospital. And I remember going out to my husband, he was in the garden saying, babe, they want me to take Macy to hospital and he was off for goodness sake. This is this is this is daft. Surely not. as well. I have to you know, they've said Take care. So I have to she was around her friends on the trampoline. So she was perfectly you know, she was fine. She was fitting well and bouncing away. So I just said to Maisie, you know, you've lost all that weight. And the doctors just want to see you. She literally jumped into the car. And we drove up to the local hospital got out of the car. She didn't have her shoes on. So it was really embarrassing. Walking through this hospital.
Scott Benner 16:30
I'm a good mom. I swear to god. Yeah.
Sian 16:32
I mean, honestly, I am so sorry. She hasn't got any shoe. She's just been on the trampoline. You're bringing
Scott Benner 16:38
the news? They're like,
Sian 16:41
yeah, shoeless skeleton, and he's so passionate. You know, she looks fine. Let's just have a look. So he took a, you know, we sample and he was like, oh, oh, I wasn't quite expecting to see that. Oh, and he said, There's glucose in this. We're going to have to do a finger prick. So he did a finger prick. And he, he just straight away. He just said, I am so sorry. But your daughter's got type one diabetes? And I said No, she doesn't. He said she does. Because that No, no, she doesn't. And he said yet. Yes. She really does have her bloods at 25, which is 504 150. She She really does. And you need to go home, pack a bag and take her down to the, to the hospital in Inverness. And I said no, do you know, my husband, for some reason brought home a bottle of Fanta today. And she's been guzzling because she's so thirsty. The Fanta. It has to be that. And he said, Well, was it sugar free Fanta? Or was it? Did it have sugar? I'm not sure I found my husband's I found my husband. He's like, Oh, sugar free. I didn't want it to be sugar.
Scott Benner 17:58
Let me try it. I don't want her to have diabetes. Does that have an impact on this at all?
Sian 18:04
Obviously, now I know that a glass of Fanta isn't going to send non diabetics blood up to 400 or 50. But at that point, I didn't know that. So he was like, Okay, it's definitely it's definitely diabetes. It's nothing to do with the Fanta. So you do need to go to the hospital. You do understand this Mrs. Evans? Don't need Yes, yes. Yes, I understand. Okay. drove home. I said to my husband, they say Macy's got type one diabetes. And that's really one of the only times she cried, we were in the car, going home from the local hospital. And she said, What is it? I said, I honestly I don't really know. All I do know, though, is that I don't think it can be cured. And she was like, oh, and she just started crying. You know, I think what we both did. And when I got back home, my husband said, I can't deal with this. I'll take her to the hospital. So he went down to the hospital with her and I stayed at home with the other children. And he found out within half an hour and said, Yep, she's definitely got type one diabetes, as they're identical twins, Darcy's got about a 70% chance of developing it at some point as well. And I was just like,
Scott Benner 19:21
what's the, what's the percentage that gave you? Well,
Sian 19:26
I've been quoted different ones. I think the lowest I've been quoted is 40%. The most I've been quoted as 80%. So I don't know just a high percentage that Darcy could, and you know, there's lots of identical twins type one, certainly on the Facebook group in the UK sort of Facebook group, and whenever I see another identical twin being diagnosed, I always send them a little message and say, you know, how long between the first diagnosis and the second one And the average is normally about two and a half years. So you're I mean, there's some totally 10 years or never happened, you know, not never happened if I've seen on the group but yeah, so we're thinking could be, could be anytime. Any Cold
Scott Benner 20:17
War never your English is coming out a little too much. Here's the part of the story where you get in the car, and she's like, What is this? And you're like, I don't know, but they can't cure it. It was very blunt.
Sian 20:30
That was all I knew about type one.
Scott Benner 20:33
Exactly. Not exactly a party clown.
Sian 20:37
Bless, I'd really ever thought
Scott Benner 20:40
I'd ever get stuck here forever. I'll tell you that. Yeah. Oh, poor. Boy. My mom is cruel.
Sian 20:51
So, yes, so I then I found my mom and I said, Mom, the hospital are keeping Maisie in for about five days, and they want us both they're in me, because they have to train us both on everything. You're gonna have to fly up. So she got the sort of morning flight. And as soon as she arrived, I, I heard you down to the hospital and our, you know, our type one journey began. And that, you know, there was just such an incredible amount to learn at first. And to get your head around, and I really I struggled, I cried and cried and cried a lot. I just, I thought that our life was going to change so much. I can remember lying in the hospital bed just thinking how are we going to go away for the weekend? You know, how are we going to do anything that I'm just going to be worried all the time. But you know, you, you learned only when things get certainly easier and more routine. But at that point, I just felt completely lost. And I still feel bad feeling like that. The other three children might have felt like they lost their mum for a while, because I was so focused on Maisie and sometimes I shout out to Darcy. And I said Darcy, can you come here a minute? And she said Jimmy Maisie? No, I actually mean you this time. She was so used to be
Scott Benner 22:26
and that's pretty sad. She's like, you must not mean me you never talk to me. Right?
Sian 22:35
And Darcy is, you know, she's just so lovely. And she just gets on with it. And she never really causes me any bother. And yeah, and I think they really did lose me for a while because I just threw myself completely into trying to make this life as with Taiwan as easy as I could for for Maisie, but the rest of them, you know, I do feel sad about that.
Scott Benner 23:04
For Maisie she just doesn't want Mrs. Bad news to come back.
Sian 23:11
But, you know, I do I feel lucky. Now, in that. I find I find type one fascinating. And I could literally talk type one all day, because there's so much to it. And there's so much to learn. And it's interesting. So I how
Scott Benner 23:29
lucky I'm sorry. How did you get to that from feeling like this? Is it we're done? It's over? Yeah, we might as well just go lay down outside and let the birds pick our eyes out to two. I like talking about this. It's not that impactful and how do you make that transition
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Sian 26:56
I read a lot in the first few weeks, I bought as many books as I could on type one, I joined the sort of Facebook groups. i This can lead me on to how I found the podcast actually. Because I can remember googling inspirational. People who have got type one, or celebrities. I think I Googled have type one. And through that I came across Adam Lasher Santana's nephew, yeah, and I really liked Santana. So oh, that caught my eye Santana. Oh, interesting as a Nisha, okay, so I googled Adam Nasha type one. And that got me to the Juicebox Podcast, because he was the first person you interviewed. That's right, isn't it?
Scott Benner 27:42
It is yeah. Yeah.
Sian 27:44
And that's how I came into, you know, the juicebox world. And that was really early days. So the podcast, following on the Facebook group have been part of my, you know, support network, pretty much from day one.
Scott Benner 28:01
That's crazy. Do you know, he, so I'm, gosh, whenever this was January 2015. And I'm getting ready to start the podcast with this completely backwards idea of what the podcast is going to be. And I was sitting down and recording these episodes by myself, where I was just basically talking through my most popular blog posts from the blog. And I did it for a little while. And then I was like, This is ridiculous. This is stupid. It doesn't sound right. I wouldn't listen to this. I deleted everything that I made. And while I was trying to figure out how to proceed, this guy pops up on American Idol. Not in the heyday of American Idol, but it still wasn't like an afterthought, sort of like it was to that it is now you know what I mean? Like, it's just last UFC of singing competitions. And this guy's got type one diabetes. And I just reached out to him, and I was like, Hey, do you want to be on a podcast about type one? He goes, Yeah. And that was, I had never recorded an episode ever when I recorded with him with. So I so my first episode was with a guy who was on American Idol. And I think that helped launch the podcast a little bit. So it's how I found the podcast. And then you've all these years later, you found it. That's crazy. Yeah. Really? Yeah.
Sian 29:21
Through that. Yeah. So I just did a lot of reading. I picked up lots of tips from different places. And I just, yeah, I just found it fascinating. And we, we were sort of, you know, we've been on it, you know, from from day one, we got to Dexcom very early on, not through the hospital, but I you know, I'd listen to you and I'd read about it and I have to have this so within four weeks. We funded it ourselves, but she was on Dexcom and that made things so much easier. And now when I, when we look back on I found one of her blood glucose diaries or to go and it said that she has had a Hypo This is before Dexcom she had had a Hypo. And then she has gone on to have four fruit pastels. Do you have fruit pastels, no sweets, so she had gone on to have four suites. And then the next reading she had be like, you know 300 Why she gone to 300. But then with Dexcom, you realize she really doesn't need four suites for hypo once we is really sufficient. So the hair God the way you treat things before you have Dexcom. And the way you do afterwards, is so different. You just can't do it, you're blind, you cannot do it without some sort of CGM or Librato. So we got we got Dexcom. And then she was MDI for 15 months now she's on T slim, with Dexcom. And control Rocky.
Scott Benner 31:04
Oh, that's excellent. I just want to make sure that the people from Dexcom heard that I just sold a Dexcom. In Scotland, that's really well did Yeah, you did. I can't I can't send you all the all the data, you know, but like, listen to what you hear people say, see, I have a question for you. Yes, I, when I see your name, it sticks out, right? It's spelled differently. And I think of you as a person who really enjoys the podcast, and it's like, and is a supporter of it. And I only know, it's odd that I only really know people through you know, little avatars and their names and things like that. But I want you to, if you can't explain to me why it's gonna sound like I'm trying to get you to say something nice about me. But really, I really want to understand why you so kind of excitedly enjoy it, because I don't understand.
Sian 32:01
Well, you know, I wrote down three things that go through my mind all the time about type one. And there are three things that you have said or done. So one of the first things I did once I joined the Facebook group, I think it was, was watched a conference that you're done. At some point, I'm not sure which one but you were telling a story and you're talking about must have been odd and having some pie, and that she needed a correction afterwards. So you then you then said something along the lines of if you're if you have a pie, and mash, or whatever, and you need a correction, then just give the, you know up the amount of insulin you're giving up front, the next time you have that piece of pie. And it was such a light bulb moment, I can remember walking into the school. That just because I had to race for pickup just after and I was just like, Oh, my God, that makes such sense. Why am I doing the same thing, giving the same amount of insulin for this meal, and each time knowing it's gonna go wrong and having to give a correction. That's madness. Why Why am I not just upping the amount of insulin? So honestly, that that just went, boom, of course. And then, you know, you often say they just need more insulin, and I do a lot of thinking in the shower. And I'll be showing thinking, why is Macy's blood so high? I don't understand it. What am I missing? Ah, she just needs more insulin. And I was up oppo ratios are at that point, upper level men now obviously just change that bump a bit. And then the other one that you say is trust, what you know will happen will happen. And oh my goodness, you have to It's so true. I know that she's going to have an ice cream, she is going to go higher later. So I can give her the extended because of that. And as long as you know it's going to happen. So treat it and I can't bear it when she goes over 10 180. And we don't we don't go really near that that often. Because I trust what will happen. I trust you know what you know will happen will happen. Yeah. And it has given me so much more control. We've always been quite mindful about doing things. She does what she wants, but we make a couple of swaps that she's happy with. And we are mindful about. Sorry. We're mindful about if she's going to have a treat or something like that she'll have it at the end of the meal. You know, like Jenny said before she doesn't really have anything carby before going to bed because it's just going to mess with her levels and we don't want that. You know I want to sleep. She wants to sleep. But I have learned a so much through the podcasts. And I think I've said on on a post before, and this is a bit morbid, but I used to panic thinking, if something was to happen to me, How on earth am I, you know, I can't impart all this knowledge to Ian. And what if something just suddenly happened to me, I just, I need someone else to, to a needy and to know everything, but I can't, I can't just download everything into his brain. I don't need to panic about that anymore. Because it's all there, the Pro Tip series, or all the information that I would need to give to Ian, you've got out there. So it's a huge worry. I don't have any more.
Scott Benner 35:40
Well, you know, I'm the only one that still has that worry. Because no one in my family is gonna listen to a podcast where it's just me talking. They will, they will stare at that podcast, like, I know what's in there. And I know I gotta go get it. But I don't feel like you're and have talked about? Well, I want to tell you, that it's, it's very, I don't even know what the word is like, I feel I'm happy that it worked for you that way. But moreover, it's, it's almost fascinating for me to hear, like, my light bulb, because these things you mentioned, they're just my light bulb moments from racing origin, right? Where I, it's, it used to be me talking to myself. And I'd be like, I have to trust that this is going to happen. It happens every time. Why do I act like the next time? It's not going to happen? Why do I keep bolusing for this meal, and then correcting two hours later? Why don't I just put the insulin up front and the Bolus? And these are not, you know, they were big leaps for me at the time. You know, because I was stuck in this. Like, I don't know, I counted the carbs. And it said five units. So she got high later, I guess maybe I kept expecting for it not to go that way. And it just never did. There's one day I was like, why are you doing this? Stop doing that, you know,
Sian 37:03
we're coming across all the information from you. So early on, you know, has just been, it's made this journey. So much easier. It really has, you know, her agency is currently 5.6. She's got the clinic in a couple of weeks. I'm hopeful that it'll be it should be Dexcom, you know, predicts it will be about the same. And really that that is I mean, I'm sure control IQ helps. At night, certainly. But all of this, the ease that we manage things. You know, so much of it is down to you and the information you get out there. So thank you. Thank you.
Scott Benner 37:48
I really, I listen, I like hearing it a little more today than usual. Because lately there's been this person who's like trolling me on online. And I'm getting these like short notes for them that are like, well, that episode was hard to listen to. You know, what would make this podcast better? If you didn't speak so much? I just was no, no, no. See? And listen, if if, listen, I know how many people listen to the podcast, if one person is drawn to telling me that that's I'm okay. You know, I don't imagine that only one person thinks. But this person thinks I'm sure. More than one person thinks that actually, I got one of my best reviews ever recently, that basically said that. Listen, I don't like that guy. But this is a great podcast, and I get great information from it. And I'm thinking that's like the nicest thing anybody could say to me, like you really don't like me. And you're still listening, like,
Sian 38:48
willing to listen?
Scott Benner 38:52
Because I can't everyone's not gonna, like your personality, you know, so. So that that I thought was great. But yeah, so I think the person's giving up now, I haven't responded to them. I think they were looking for, you know, they were looking for a fight. And I Yeah, to that person, if you're listening, I'm an adult. I'm not going to fight with you. But But, but it's still, it'll still like, hate every once in a while, like, well, there's a person out there who heard that episode and was like, this is garbage. I can't, this is terrible. And then no lie. Last night. I got a note from a woman who said, I want to be on the show. And I was motivated by that really excellent episode you just put out. I love that. She goes on and on about what she's what she loved about it. And then she tells me what episode it is. And it's the one that the other person told me was terrible and they couldn't make it through it. And I was like, oh, okay, I had to be reminded that everything I say can't be universally beloved. You know what I mean? That there are just going to be people who are like, I don't like the guy you know, so Anyway, it was nice to hear that you do, because maybe I'll stop thinking about that guy now.
Sian 40:07
Yes, then get him out of your mind. You don't need that negativity.
Scott Benner 40:10
The other reason I appreciate you sharing that with me is because I actually just finished up my, my slide deck for touched by type one, which I'm speaking at in Orlando in like four days. And I went over it last night, I was like, This is good. I like the way these are ordered. I can see how it'll pull me through the conversation. I don't prepare anything before I speak. So I just I look at the slide. And I was like, oh, yeah, I'm going to talk about this idea now and then tell a story or an anecdote or give an example or something like that, move through it. And you hit on. You hit on main ideas just now that i Last night was like, Well, I have to keep this and this has to stay here. This has to stay here. Right? And you said yes, thing. So
Sian 41:00
um, oh, that's excellent. Because yeah. And the only other one that is the fat and protein, what you say about fats and protein? And then I have an app on my phone, which I think someone was it yourself. Yeah. And that's so useful, so useful. And, you know, you put all of that together, and you're left with something that is, is more manageable than, than at first you ever believed it could be, you know, same bat lying in the hospital bed and crying and thinking, you know, we were meant to be going on holiday that year to France, and it was canceled because of COVID. But we, we just went we got back a few weeks ago. And we were in France for about three weeks. And I never believed that was happened, I really didn't. I was terrified of how the heat was going to affect Maisie and having the pump and the swimming pool and all these different things. And I actually ended up being myself for 10 days, I was I'm not sure what was wrong with me. But I was completely knocked out to the point that I barely looked at Macy's Bloods, which I glanced at my watch, countless times today, the same way her bloods are out. But I didn't even have the energy to look at that. And it was it was great, actually, because it meant that Maisie really took control herself. And she did absolutely awesome. And now, I used to always send sweet emoji. Oh, that's the other thing texting diabetes. I mean, Maisie and me have done it. Pretty much from the start. I got her a watch. And she we just text and I sent her a sweet emoji if I think she's going low. And she just, you know, does a quick okay, so that she's had a sweet, but now if I send a sweet emoji instead of okay, I get already had one. And that was really because I was ill, and backed off a bit on holiday. And it gave her some time to really have to get to grips it herself, which well, she did you know, amazingly blesser I can't remember see this.
Scott Benner 43:23
No, but no, you're fine. It's interesting that you're getting ill, it was a step forward for her for her care. And for you.
Sian 43:32
Yeah, it was and, and really, type one wasn't the most wasn't the thing on everyone's mind. In that holiday. It was, you know, way down the line, everyone was more worried about me, and what was going on with me. And the practical stuff of type one had to keep happening, you know, we had to change the pump, we changed the Dexcom, etc, etc. But everything else just was just our normal life. Well, and you know what that tells me, that's all that was happening
Scott Benner 44:04
yesterday. And what that tells me is that everybody should be paying attention for moments where their kids or you know, their spouse or whoever, they're very helping other diabetes and say to him, Look, today, I'm not going to help you. Or, you know, let's see what you do. Like I, you know, I'm gonna get on a plane on Friday, and I'm gonna probably send art and a text that says, I, you know, I'm not going to be any help to you for the next six hours. So and then it just forces in the right way forces a person to say, alright, well, this is on me. I'll, I'll pay closer attention because there's probably in Arden's head, always a part of her that thinks he's got my back, you know what I mean? And it can keep you from being vigilant in the right places, you know, in the right moments, and at the same time, you make this great point that it didn't overwhelm her. It didn't ruin The day or anything like that, that there, the way you put it, I forget exactly the word to use, because you use all kinds of Europe words and not my word. But there's something about the idea of diabetes becoming very functional and in the background and not in the front of your brain, you're not always sitting thinking like, well, what's gonna happen next to my ear? She's gonna get low two hours from now, I know that that stays out of your head. How much does Dexcom have to do with your comfort? With that? Oh, has to be
Sian 45:29
100%? It's, I couldn't I honestly don't know that I'll be functioning without Dexcom. I am. I am. And I worry a lot about everything. And I am anxious. I like to be in control. And without Dexcom I would feel completely and utterly blind. Yeah, I used to, I wouldn't go.
Scott Benner 45:55
I used Ardens Dexcom. This morning, too. So this is weird. But you know, Arden is a lady, which, you know, Macy will be someday. And she's had. She has different blood sugars throughout the month. And then she has different needs for insulin a couple of different times a month. And when they change, they change pretty quickly. And I can actually see her period start and stop in her CGM data. Wow. Like I know when it's happening just from what like what's going on? Like, I'm not I'm also reasonably aware of her cycles. So I'm not like, it's not like I look up on a Wednesday. And I'm like, what's happening? I can tell by the bend of the line. But I know, I know that she's about to get her period at some point in the next day or so. Right? And just how her blood sugar is acting over the last two hours, tells me that when she wakes up, she's going to have her period.
Sian 46:55
Pass mad, isn't it? I mean, I say it's amazing. Sometimes it is odd that we have this extra view into her. You know, she had this. She had some really horrible ulcers at the bottom of her lip inside her mouth, you know, sort of by her gum, just just this weekend. And she was in a lot of pain, I think what was going on here, but I was looking at her Bloods, which were totally fine. I was like, well, she's she's not getting, she's not getting a sickness or anything. She's She's, she's well in herself. Because if she wasn't, her bloods would be going a bit crazy. And I was like, this is weird that we have this extra insight into your body. And are you getting sick? No, you're fine. And you know, they've disappeared, and she's much happier because she can eat, eat easier again. But yeah, it is interesting, isn't it that we see something in our children that other people don't? You don't if you
Scott Benner 47:55
told me I could wear a sensor. And it would report back to an app and tell me, Hey, your vitamin D looks low, your irons a little low. You know, you should probably think about eating more red meat because of this, or you know, your cholesterol is moving up like I would gleefully wear something like that. Yeah. Yeah. Because definitely, because the what's the idea? We used to say about my little brother, Rob, Rob's either actively in trouble, and you're aware of it, or he's doing something that he'll be in trouble for later. And you haven't, you haven't found out about it yet. Such a scoundrel when he was a young person. And so anyway, the point is, I would like to know that there's something afoot. I'd like I'd like to be able to get ahead of it, because because I think there's a level of wellness that is attainable. And then there's this level of wellness that we live at, like you can go on, you hear people all the time, like, Oh, I've been tired for six months. Well, what if it was just, I don't know, your vitamin B and your vitamin D was off. And you're never going to know you're going to you're gonna drain down into the point where you drag your sorry, ass into a doctor and say, I'm dying here. Like, I don't know what's going on. Then they run all this blood work. And they come back and they say, Oh, well, you know, here, here and here. Let's address these things. And then months later, you start feeling better, because you've you've made this dress. How great would it be if it just a bell went off and said, hey, you know, eat more spinach dummy, like right now. Be great. Yeah. So and it would change. You know, it would change your life in a way that you can't imagine because we don't think of ourselves that way. But you just pointed it out with diabetes, because in this one specific scenario, blood sugar, we know exactly where it is constantly. Yeah, and you can fine tune it. But now you're doing it, you know, with diabetes. So you know, so bad stuff doesn't happen quickly. But you're, you know, other levels in your body being deficient or having too much also has a poor impact on you. It just happens so slowly, you can't quantify it, you know? Yeah. Anyway, I would take that if there's anyone out there. smart enough to make that happen. I just think it would be amazing to have like the results of, of of cam panel and a CBC and stuff like that, you know, running in the background constantly.
Sian 50:34
Oh, it would be good. Oh, keep ourselves in tip top shape.
Scott Benner 50:38
I also want to say real quick sand, just in case someone does take my idea and run with it. I'm patenting this right now. You owe me money. Okay, sorry. I just wrote a piece. I will I will sue. Now. Just kidding. I mean, sounds like technology. Obviously, that probably doesn't exist. Because if it did, I don't think we'd all be getting blood draws to get you know, things checked. But I just I liked the idea of it. So yeah. What else you have? What's on that list? Yeah.
Sian 51:08
Well, one really random thing on the list, our consultant, and I had never seen anything quite like it. So you know, I like to make things simple and keep things in control. And the Macy used to get really quite flustered when she was an MDI about rotating her sight. And she used her thighs for a lot of injections. And she put it off, you know, she spent ages touching her leg, have I done it here? Have I done it there? So how can I make this easier for her? So I ordered some henna tattoo pens, and we we made this grid on her lick on her thigh, just you know, with a number of boxes, and she just went up and down the boxes, doing her injections. And it meant that, you know, she didn't have to worry about rotating because she was always rotating. She was just going up and down her leg. And I can remember taking her to see the consultant. She said, Oh, I'm just going to check your sites. And she was like, what is that it's zero, I was trying to work out a way to make rotating sites easier for Maisie. So I just got these tattoo henna pins, and we just draw on her like a grid. And she works through that. And she's like, Oh my God. I've never seen anything like that before. But it works brilliantly.
Scott Benner 52:35
It's a very good idea because people get stuck. It happens the origin all the time. She's like, this is where it goes. I'm like it goes anywhere you want to put it really. So you know, like it's and then you start getting little lumps under your skin because there's too much insulin, you have to move it around. We just well. So there's been for years, I've known, you know, obviously I was saying earlier about art and having different insulin needs different times of the month. She also has different sites that work better or than others. And I don't pay any attention to it for years, I let her put her stuff wherever she wants. There are times that she's ovulating and she's puts it on her thigh. And I think don't do that because her thighs and her thighs not as absorbent. And work doesn't work as well as a couple of other places. And during ovulation, she needs more insulin. And so I said to her recently, like look, you're leaving for college. Now, here's the thing I've been doing for you for years that you're unaware of, as I've been putting in extra effort when your site doesn't match your needs. I was like But moving forward from now on these days. And she has a period tracker. I'm like these days right here. You were your pod on your arm. And these days right here, you can wear it wherever you want. And on these days right here it needs to go on your stomach. That's great. That's great. We'll make your insulin work better for you. Yeah, situation. Yeah. So
Sian 54:02
yeah, yeah, that's brilliant. I mean anything that helps the moment Maisie always were so cannula for her pump on her tummy. Rotation is becoming a bit of an issue because, you know, she she gets quite set in her ways of where she wants to, and she won't listen to me now. So I've said, you know, two weeks, we've got the appointment with a consultant, she's going to have to tell you more about where you can put it on your tummy, because you won't, you won't take it from me. And if she favors certain points. So hopefully she'll she does listen to the consultants. She's quite a rule follower. So hopefully, if they say right, you're gonna have to move it around a bit more. She will. In the past I have used Roblox robux is it wrote books about chess vouchers to get her to do things, a little bit of bribery. has helped bless her, you know, really wanted her to try. We really struggle with comfort So most drive me up the wall. And she didn't want to move it onto the, you know, her hips sort of top of a bum area. But I, you know, I bribed her and she moved it. And that had that worked for a while, but she's had sleeping so heavily, and it's always on the wrong side. So I have begged her to move to her thigh again, which she says no. So I will be nipping into the shops on Saturday, voucher and bribing her to try again, because she always thinks on her back and the number of times I have to get up and turn it over. Oh. So yeah, a little bit of bribery. blesser.
Scott Benner 55:42
Is her personality like yours?
Sian 55:46
In what way?
Scott Benner 55:47
You said she likes you said control for both of you.
Sian 55:51
Yes, yeah, she she does? Definitely.
Scott Benner 55:54
What about her twin? Do they have similar personalities? Are they different?
Sian 55:58
Do you know it's swaps and I don't know how much type one has to do with this. But it used to be that Darcy was very confident and Maisy was a bit shy. But actually, it's it swaps more recently that Darcy is a little less confident. And Maisie is more confident that we weren't shopping the other day. And you know, they each had a cash card or some cash. I can't remember to go and buy something. And Darcy felt too nervous to go through the checkout. So Maisie went twice. She paid for her things. And she got nasty stuff and won't remember. I was like, That's interesting, because it used to have been the other way round. Yeah, I'm not sure why, but Darcy's very pragmatic. She, she's funny. She's, she's really, they're both very kind hearted. But Darcy's probably a bit more easygoing. I think that all the attention that Maisie got in the first year of her type one turns around a little bit into a monster. So we had to, I had to stop. I probably did spoil her a bit. Okay. Yeah. So I had to dial it back. dial it back.
Scott Benner 57:13
Yes. humbler? A couple of times.
Sian 57:17
Because I was told in no uncertain terms by particularly the eldest Scarlett, but yeah, I have created a bit of a monster.
Scott Benner 57:25
I love how I love it when my kids come to me and explained to me what I'm doing wrong with parenting. Oh, yeah. You know what you're doing wrong? My son's like, here's what you've done wrong. I'm like, Oh, okay. kid living in my house. Got no money. He's telling me what's wrong. Oh, my God, that's fine. But they're often right. Honestly. The end? Yeah, it's, it's, um, it's, I find it helpful, actually, you know, when they're, like, Hey, why are you? Why are you doing this? And like, I don't know, man. I'm just like, I'm tired. I'm old. Like, I just, I'm doing my best here. But I didn't think any of this was gonna happen when I saw your mom's boobs the first time, which was really the reason any of you are here. It's just how mom was just how mom looked at a shirt one day. It's got nothing. I wish there was something bigger to it. But I was like, I really want to try to see them if I can. And then here we all are. 30 years later, yeah. Oh, no. Wait, so you're asking me what I'm doing? I don't know. You're not gonna know, either. And 20 years, so good luck.
Sian 58:29
Yeah, it's exhausting. I'm exhausted and overwhelmed quite a lot of the day.
Scott Benner 58:33
Yeah. I always wonder what people do who don't have health issues in their life? Like, what would I do with all that time?
Sian 58:40
Yeah. And what would I be what I mean, my husband always says, You always worried about something. You know, I worry about type one now. But I wonder what I would be worrying about is type one wasn't
Scott Benner 58:51
CCN you and I are different. I wouldn't be worried about a damn thing. Would you
Sian 58:56
know, I was fine. Something there's no doubt about that.
Scott Benner 59:01
There's a whole other me in here that you don't know. And he would be relaxed. But I but I do wonder that sometimes, like what do they do, like I look at all the time I spend here and there. You know, like just five minutes on this and five minutes on that. And you know, forget, I'm not even talking about the podcast. It's not a lot of time in our life, but it's still time. Or you know, when you're at a restaurant, you have to pick up like in my head, give me your phone. And I don't want to be asking Arden for her phone. You know, like I just I but here we are on like, Hey, can I get your phone for a second? And I've learned I used to say give me your phone. And now I say Hey, can I see your phone? Like it became important to her as she got older that I asked her permission to take the phone from her.
Sian 59:46
But yeah, I think most it'd be the same. Yeah.
Scott Benner 59:49
So I learned that but I'm also a boy. See, and so you understand, like, I don't think about things like that. I don't think about how I sound or what I'm big because I know my intent and My intent is pure. So I don't need to. I don't know, I don't I don't need to like, I'm way nicer on this podcast and I am in my real life. Because I don't know if you're a kook, you know what I mean? So I gotta like kid gloves. Like, while I'm talking to somebody, because I don't want someone going off on me. How amazing is that in 750 episodes, no one's yelled at me. I keep waiting for it. I keep thinking someone's going to come on under false pretenses and get on and be like, I hate you. And I hate this podcast. And it just doesn't happen.
Sian 1:00:32
If that if that happened, would you? You know, happy
Scott Benner 1:00:36
I'd be like, oh, please tell me why.
Sian 1:00:39
Like when you'd put it on to the out there. Oh, of course,
Scott Benner 1:00:43
though. Yeah. Well, I just, it's, um, it's just, it's a good conversation, like, for the same reason that I asked you, can you tell me what helped you about the podcast? I'd want to listen to somebody and say, Hey, what don't you like about this? Yeah, you know, yeah, now someone's gonna probably do
Sian 1:01:00
it. But I was just about to be careful with
Scott Benner 1:01:04
six months of people being like, and another thing, you're great. But, you know, it's just, I don't mind the feedback. Like, I don't take it off. Like, I've gotten feedback in the past where I've read it and thought, well, that's reasonable. You know, and I do this thing now where, when I make transcripts for the podcast, I use this online service. And I'm gonna pull it up now just for for fun. And so I drop an mp3 file online, and it turns it into a you know, a Word file that I okay line so people can there are people who read the podcast, God bless them. I think I'm hoping it's for reasons of like, auditory problems and stuff like that, not because they're reading podcasts, because it seems odd to me if you're just reading.
Sian 1:01:53
I used to listen to the West Wing weekly, religiously loved it. And but I sometimes did read it rather than listen.
Scott Benner 1:02:01
Wow. Yeah, that's not for me. Yeah.
Sian 1:02:04
I did. If I think it was if I was particularly looking for them to discuss a certain thing, and I didn't want to, maybe this into everything else at that point. So I would just have a quick scan. Oh, yeah. Okay, they did discuss it. I'm gonna listen to that one right now. See, and
Scott Benner 1:02:21
I have a limited, like edition poster made by someone overseas. Actually. It right behind me. It's, um, it's us Governor Josiah Bartlett for President. It's the greatest like it's a campaign poster. But from the TV show. I thought it was really great art when I saw it the way the person. But But So here, I just pulled up an episode that you all haven't heard yet. Right. Okay. And I am listed as a speaker and Margaret is listed as a speaker Margaret spoke 49% of the time, and I spoke 51% of the time. Okay. And so I my eyes glance over those numbers. When, when we when I make episodes now, and if I see the, if I see it splitting, I get like, okay, don't talk too much. Like I have that feeling. And there are some What do you like it to be?
Sian 1:03:17
5050?
Scott Benner 1:03:18
I like 6040. Me. But also, that's because I'm I read bumpers in the front where there's not another I read the ads in the middle I read at the end like it should be if it's 6040. Maybe it's probably more like 5050. Yeah. In the episode, if it's 5050, then it's probably really more like, you don't I mean, like, I'm probably talking a little too much. And then there are times when Jenny and I do like short management stuff, where I'm it's almost like a comedy team. But we're not talking about something funny. I do the big setup. And then Jenny comes in and gives her opinion. And so there are people who hear that and think Scott's talking more than her, but I'm putting you in the position so that when you hear her answer, it flows into your mind easily. Yeah, like, yeah, I set her up and she, you know, she kicks it. That kind of thing. Yeah, here's another one that just went up the other day. 55 me 45 Aaron, this. That's perfect. Like for me. There. There have been a couple where people start talking, and I can't stop them. I'm just like, I just give up. I'm like, Okay, go ahead, talk your face off. I don't know what to say. You know, just and then I'll look later and they spoke like 70% of the time and I spoke 30% of the time then I realized like 10% of that is me like saying like dexcom.com forward slash Oh, my God. I never spoken this episode, you know? But they all to me, they all How do I want to put this? There are episodes that I've made that I personally wouldn't want to listen to. And okay, and then I get great feedback from them. And it reminds me that I'm not everybody. So even if, even if the content is good, but I didn't like the flow of the conversation, or something, there's still someone out there who it will hit. And so it's valuable for them. It's almost like when I put up episodes about people who are pregnant with type one, they're very popular in a segment. But overall, they don't download as well as other episodes. Yeah, because not everybody is interested in having a baby or they already have or whatever. But I still see them as a public service. So I don't like when somebody says, I want to come on, like I have one going up in a couple of days. It's about IVF. I'll tell you, I can tell you this, right. It's about IVF. And pregnancy. That's what it was supposed to be about. This woman was going to come on and talk about in vitro fertilization, and her pregnancy and she was going to come on in like, like pregnant and talk. And we're having the conversation and you know, I'm just building the conversation of I don't know how far we are into it. 20 minutes, 30 minutes when I realize she's had a miscarriage. Oh, recently. And I just like, I got crestfallen. And I said, Why did you come on and do this? Yeah. Like, like you didn't like, and I started, I said to her, I'm like, Oh, God, I said, so many stupid things over the last 20 minutes. Like, I didn't know, you just had a miscarriage, you know, and she's like, it's okay. And, and I did not expect that to happen. Right? And so when you put that up as an episode, it's really going to help the people who need it. And yet there are going to be a larger percentage of people who are going to look at that episode, pass that by not listen to it. But I never think like, Why can't run this? Because I'm giving away downloads today. Like I don't I don't I think of it as like, it's a it's like a public service. Not everybody needs it, but somebody does.
Sian 1:07:00
Yeah, and not everyone needs at this point. But they may well need it at some point. And now it's there for you know, it's there for me and for Maisie in the future, to reflect back on
Scott Benner 1:07:12
Yeah. So, you know, it's, I mean, making the podcast is really was just somebody, somebody kind of flipped me around the other day while we were talking and they kind of interviewed me for a second. And I told them, like, I think of the podcast as a, it's like a compendium of diabetes knowledge that could exist forever. And that will mainly be valuable for a long time until until management somehow, like drastically changes, you know. And I told him that I just recently contacted the company that hosts my podcast, and I sent them an email and I said, this is going to sound morbid, and I'm, I'm not ill, I just but what happens if I die? Like, how do I keep this podcast online? And they told me and I'm gonna mention it in a few episodes, so that somebody hears at some point, if I suddenly dropped dead, and you just don't hear from me anymore, if you contact the company that hosts my podcast and tell them that I died, the hosted for free for the rest of the time, they're in business. Because because it's a medical podcast, and it helps people. Well, that nice,
Sian 1:08:19
you know, that's really nice. It's gonna happen to you. But yeah,
Scott Benner 1:08:24
I'm doing my bad. I'm not doing my best to stay alive. I'm doing a decent job. I was doing my best. I wouldn't have sat up all night last night. Arden is getting ready to go to college in a couple of weeks. And she comes into our room last night, she's, you know, she's like, Hey, she's like my legs. She's getting ready to get her period. She's like, my legs hurt. Like, can somebody robbed my legs. And this is now what I believe why women get married. It's just so someone can rub them when they get their period. I really believe this is all they're looking for. And so she comes in, and I said, You better hope your roommate in college wants to rub your legs and she's, I don't think she's gonna want to do that. And I was like, Well, I better talk her into it. And so and she grabs my iPad and starts looking at pictures and she finds old photos from like, my wife's family that have been scanned from like generations in the past. And she starts flipping through them and before I know it, we're flipping through like, my wife's family growing up through my family growing up into our young family. And, and before I know it, it's like 330 in the morning. Oh, my goodness, like I gotta go to bed ice and I'm yeah, I gotta get up and record with somebody in the morning. And I was like, you'll you'll just art and you'll just sleep while I'm while I'm up you know?
Sian 1:09:41
And you sound very sprightly. You don't you don't sound tired.
Scott Benner 1:09:44
Thank you. I got an iron infusion recently. I'm doing great. Oh, sorry. Good. I'm all jacked up
Sian 1:09:49
and how I am. I'm in a similar ish situation. Our eldest Scarlett, she is going to boarding school on Monday. they, Oh, wow. Yeah. And she won a scholarship. Bless her. She's done incredibly well. We're very, very proud of her. But I am finding myself crying. Often. We had a barbecue for her at the weekend, and I chopped up some celery and I was just sobbing, thinking, I can't do this. I can't let her go. And but then suddenly, you know, she's 13 and a half, you know, she's, she's not little, but she's, you know, still my baby. And. But then it suddenly dawned on me that if she's not happy, she can come home. That's it. Yeah. So as long as she's enjoying it, and hopefully she will, you know, it's an amazing opportunity for her. And it's a fantastic school that she's going to, and it's not that far away. It's only an hour and three quarters. And she's actually going to be home every month, whether it's for a weekend or for a holiday, you know? But yeah, my heart is, is hurting. I don't know how I'm gonna leave. The parents have to leave at four o'clock next Monday. I'm not quite sure how I'm gonna walk off of that campus.
Scott Benner 1:11:11
Crying. Yes. Sobbing being well, so Arden's going to college, some form, it's about a 14 hour drive from here. So it's a plane, if you have to do a quick like, we're leaving on, like, we're leaving at the beginning of September, like a full day and a half before she has to be there. And then wow, and we're taking we have to take two cars to get all of her stuff there. And you know, it's just,
Sian 1:11:39
it's gonna you emotional.
Scott Benner 1:11:41
I lately I've been saying to her, you know, are you sure you want to abandon me like this? And just go to college? I was like, you could stay and go locally. I'll give you money in a car if you want to stay. Yeah. Wouldn't you like money in a car? You know? So, but she's so excited about what she's doing and where she's going. antastic she told me that's amazing. Yeah, she said last night, she's like, I just want to go now. She's like, she's like, I went through not being sure. And I went through being nervous. And I went through being scared. And now I know for sure this is what I want to do. And she's like, but it's like two weeks from now I just want to go. And I don't know how to explain to her like, I Please don't leave, like just stay, you know. And then last night, while we're flipping through the picture, she points to this photo of her, like in a bouncy seat. So how old are you then you're less than, you know, you're about six months old. You put them in those little seats. It's so they can kind of learn how to hold themselves up, you know? And she goes, isn't it crazy? That That baby's going to college next month? Like what are you doing? Like so that it's three o'clock in the morning and I make me cry? You know, I guess
Sian 1:12:46
garlic keeps playing this Abba song. I don't know the name of the song from Mamma Mia. And the first words are something like school bag in hand. She you know, it's basically about leaving home. And I am just sobbing. She's playing it in the car and she's doing it on purpose, because she knows it's gonna break me.
Scott Benner 1:13:05
Well, you want to hear something every time you want to hear something worse. That song called slipping through my fingers.
Sian 1:13:10
That's what it's cold. Yes. That's the one. Right? So So I was just about to say thought oh, is Arden. Are you still gonna be following Adams numbers?
Scott Benner 1:13:21
Oh, yeah. She's not gonna be like that. No. She's, you know, she's going to be sleeping on her own with. I mean, we were going down getting her moved in. We're actually going to stay a couple of days afterwards. And, you know, go out meet her like, so she's gonna have I don't know how you would put this Are they flatmates? So, yeah, so she's in a, she's gonna be in a room that has two bedrooms. And there are two girls in each room. So there's four people in the flat, I guess. And I'm trying to say this in a way that you would understand. Ignoring, ignoring that 90% of the people listen to podcasts in America. And now we're like, just say that it's an apartment with two bedrooms, you know? So it's an apart it's an apartment style with two bedrooms. Right, two girls needs room. One girls from Hawaii, one girls from North Carolina Arden's from New Jersey. They've all met online, they've been chatting, you know, and stuff like that. But it's a strange thing. Like we're gonna have to take these girls out to dinner and sit down with them and be like, hey, so if Arden's thing you know, like, which one of you would be comfortable sticking this in her but if you know, like that kind of thing, and I feel badly for them even because they're also nervous and excited and etc, but we can't leave that space without those people understanding basic safety care for art, you know, is that to help yourself
Sian 1:14:47
and desire to never get a compression most.
Scott Benner 1:14:51
She hasn't recently, but she has. I mean,
Sian 1:14:56
if you phoned her and said turn over.
Scott Benner 1:14:59
Well, we're about the Find out because when she stays by herself, and we've been doing these little test runs for the last couple of years, like going to like Kelly and I went to a wedding and left her by herself for a couple of days. And she does seem to wake up when she knows it's on her. She seems more receptive. But if she had receptive to the sounds, but if she's has confidence that someone else is looking, then she doesn't hear it so much.
Sian 1:15:25
But I, the A few weeks ago, Maisie had a sleepover in the village. And I was running through the streets at 4am. Because she, she was sleeping in a little trailer with two other children. And I'd said to just push her into bed, try not to have a compression. I said, Don't worry, Mom, I won't because I can't actually turn over. We're, like stuck. Yeah, that's brilliant. Okay, great. So when I woke up to let me find the, to 50 with arrow down, what's this? This shouldn't be happening because she couldn't turn over so I don't understand. And then I just get l o w. You know, lo I'm like, Oh my god. So for I am I'm racing through the blooming village. Find her and one of the children had gone home. So she now had to turn over by his phones her five times. Nothing. She just, you know, her phone was on. But she was just sleeping through it. It makes sleepovers difficult.
Scott Benner 1:16:32
Then you get there. You're just like rollover.
Sian 1:16:36
You're fine, right?
Scott Benner 1:16:38
I'll make my way back. Luckily, the ladies out there tanning the leather. I can say hi to her. And I know you don't. In my mind. You live in the Smurfs Village. This is little mushrooms that you live in. That's not the case. I'm getting close. Do you love it? When I say something outlandish to people who are living in Canada. And they go yeah, that is kind of what? I think I'm being stupid. And they're like, no, there is moose in my backyard. And like I know. There's a there's an episode coming out next week. With that girl, Margaret, that I mentioned earlier, and it's going to be called Midnight gnocchi. Is that Is that how you say that? No, it's not there's a it's that's pasta. How do you there's a more of like, there's a fancy way of saying the word. Anyway. I wanted to name the episode Yukon asked shaker when you find out why you're gonna be so
Sian 1:17:37
is this an after dark episode? No, it's not. She
Scott Benner 1:17:41
just she was just found herself in the Yukon. Like, like, pole dancing, but with their clothes on in a casino and, and you know, and I'm like, I'm like, what is it? And she's such a nice crunch. You know, I'm like, how did you end up doing this? And she's like, I don't know, I didn't do it long, etc. And then I was like, did they throw chips at you? And she goes, Yes.
Sian 1:18:07
I was. I was laughing at the last one that I listened to. I can't remember the young girl's name but you were explaining the word.
Yes. What you said, Oh, we're having a lovely moment now.
Scott Benner 1:18:25
Just like you and I are gonna have such a lovely moment. I'm gonna teach you a word. Basically, she's like, 2122 years old. She's college. Yeah. And she's just trying to figure out how to keep creepy guys offer and drink it. Yeah. And I'm like, do you want to know what a kucha mountain? No. Then I realized she didn't. Then I started stopping because I was like, I don't think she understands what this word is either. So we started defining words as we were talking to her. She was really good. She was very honest about what it was like for her to be at college with type. Yeah, I thought that was really that was one of the episodes that my tormentor doesn't like,
Sian 1:19:08
Oh, really? Hard to get? I don't know it was I like listening to those ones about college because you know, sort of prepares me a bit for what to expect in the future.
Scott Benner 1:19:22
Listen, if I'm being honest, and there's no way for me to know people are what's in their heart. But I think this person that I'm talking about might be a dick, so don't worry about that they're just trying to be difficult. Alright, so, Stan, is there anything we haven't talked about that we should have?
Sian 1:19:38
Nope. I've gone through my list. Nope, we've covered everything. It's been a pleasure. Thank you so much. No,
Scott Benner 1:19:46
it's about my pleasure. Your accents. Terrific. You're great. You're great. You're exotic, and understandable.
Sian 1:19:53
I'm dreading this index. I actually hate my voice. Think I sound I was thought I sent like a mammoth. Because if I've got a cold and yeah, I don't know
Scott Benner 1:20:04
what, first of all, I haven't gotten to the point where I asked you if you've if you have any of those big Scottish cows there you?
Sian 1:20:13
Oh, yeah, not far. Yeah,
Scott Benner 1:20:15
they seem around the corner. I would love to see them in person one day, but that's Yeah, they're really beautiful. But what did you say about your voice? It's like a mammoth. Yeah,
Sian 1:20:24
like a woolly mammoth. I don't know why. But as a teenager, I always used to think I sounded like a woolly mammoth. If they were going to speak, I think they'd come out with my voice.
Scott Benner 1:20:33
It's like a snuffle off. I guess thing from thing.
Sian 1:20:37
Yes. Yes.
Scott Benner 1:20:38
So you think you're you think your voice sounds? Like muted? Like not bright enough?
Sian 1:20:46
Yes, yes.
Scott Benner 1:20:50
I don't see that. You know, there are four people in the Facebook page that have the Euro first name spelling. Really? Yeah, that's,
Sian 1:20:59
that's pretty pronounced that Shawn. I might be wrong. There might be a response to that. On the on the group, but yeah, Sean is the most common way of pronouncing but my mum decided to pronounce a Seon
Scott Benner 1:21:15
Do you it's your mom just illiterate? What is going on?
Sian 1:21:21
Why she chose it. I mean, my sisters Gemma, you know, why on earth did she call me Seon? It's just been such a and when people say it right the first time on Wi Fi. What?
Scott Benner 1:21:31
What's wrong with you?
Sian 1:21:33
Yeah, like my husband can't say my name properly. So he just calls me Babel.
Scott Benner 1:21:38
Are you the blonde in the
Sian 1:21:40
photo? Yes. Camping photo on your Facebook.
Scott Benner 1:21:44
Are you the blonde in the camping photo? Yes. Okay. Probably Probably. Other Other
Sian 1:21:50
in your camping photo.
Scott Benner 1:21:53
You have no photos up on online. So it's either you or your family went away with another woman? I'm not sure which it is.
Sian 1:22:01
It will be me. Yeah. We're not friends. Is there only a few that come up?
Scott Benner 1:22:05
Yeah, I just have a pop up. Yeah, that's all I was trying to stalk you for a second. while your kids are lovely.
Sian 1:22:13
Yeah, the cuties. Absolutely. Alright, so
Scott Benner 1:22:16
you have the cows. You sound like snuffle off, I guess. I don't know why. But didn't he wasn't he like depressed? Wasn't he like, hey, bird? Yeah. Oh, you don't sound like that at all.
Sian 1:22:32
I'm gonna have to find him now. Yeah, well, thank you. That's for some reason what I always I always felt like my dad once told me he thought I need to my adenoids out because I just always sound like I've got a cold that's always stuck with me.
Scott Benner 1:22:52
That's where you got that shining bedside manner when you're like, oh, it's diabetes. I don't know anything about it. But I know you can't get rid of. It ain't no thing where we take your adenoids out and you sound like Big Bird. I'll tell you that much. Oh my god. All right, well, oh, my little bubba. I appreciate this very much. Thank you for doing this. Thank you very much. Take care.
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