Scott Benner 3/2/23 Scott Benner 3/2/23

#860 Type 2 Diabetes Pro Tip: Series Intro

A series for people with pre and Type 2 diabetes.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or wherever they get audio.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

00:00:22 Type 2 diabetes pro tip series.
00:06:03 Understanding type 2 diabetes medications.
00:13:34 Importance of education and technology.
00:18:12 Individualized approach to diabetes management.
00:22:39 Diabetes podcast helps educate and support.
00:29:38 Food can be medicine for anyone.
00:33:54 Understanding the impact of diet
00:39:59 Guilt and shame in diabetes.
00:45:43 Misdiagnosis and stigma in diabetes.
The timestamp in the podcast where it starts to say "Standard of care for type 2 diabetes needs improvement" is 00:51:32. Standard of care for type 2 diabetes needs improvement.
01:00:03 Exercise is often overlooked.
01:04:22 Helping people with diabetes.
01:08:28 Nothing is impossible with persistence.

Scott Benner 0:00
Hello friends, and welcome to episode 860 of the Juicebox Podcast.

Welcome back, everybody. This episode of the podcast is going to be a little different than you're accustomed to. Jenny Smith and I are going to be talking today about type two diabetes, we've decided to put a type two series together, not dissimilar from the other series within the podcast, but focused on type two. This is the first episode, it's an introduction episode, and it's going to lay out what the series is going to be. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. If you're a regular listener of the podcast, I hope you check out this series and then really think about who in your life could benefit from it. If you're a person with pre diabetes, or type two diabetes who finds themselves here, welcome. I hope you enjoy this. And I hope it helps you. I really think it will find the Juicebox Podcast and your favorite audio app and hit subscribe or follow to get the next episode of the podcast and to continue to get this series.

These episodes are available, of course in any audio app by going to the Juicebox Podcast and searching type two diabetes pro tip. And of course, they're available at juicebox podcast.com, and diabetes pro tip.com. At the end of this episode, I'll introduce myself and Jenny to you. So you know a little more about us. This episode is being brought to you today ad free because of the generous support of Dexcom on the pod. The Contour Next One blood glucose meter, G fo Capo Penn ag one from athletic greens, US med touched by type one and cozy Earth. If you're interested in learning more about the sponsors, there are links in the show notes of the podcast player that you're listening in right now. And links at juicebox podcast.com. So, Jenny, it's good to see you again. I feel like I haven't seen you in a while.

Jennifer Smith, CDE 2:35
It has been a while. Yeah,

Scott Benner 2:37
I agree. Now, for the people on the podcast, they hear you all the time, but I haven't seen a little bit. So we're gonna undertake something, something it's been in the back of my mind for years. And I know you've talked about it a lot as well. And so I think we're a good match for this. So I'll just share with you that my initial idea around type two diabetes conversations. I thought to myself, like I have this podcast and this outlet, I can find people. But I'm not a doctor. And I don't know anything about diabetes, type two specifically, right? How would I help people with type two diabetes? Like how could I use the thing I have to do that. And what I kind of came up with is like, well, I could be the person. Like I could be the stand in for the person listening because I find that more and more of the people I talked to who have type two diabetes seem to sometimes have a very, I don't know what the way to say it is they they have a small understanding of what it is they're expected to do. And even what is happening to them, right. So while I might not have a lot of answers, I'll be I'm going to be your avatar. Listening, I'll be their avatar, I'll be the guy going I don't understand this. Explain this to me. And you'll be the person who understands that who says, Well, let me explain this. So but we have to figure out some bones for this series, like some structure, right? And because you and I don't work together, like every day, we're not sitting across from each other, something like that. It's not like we can talk at lunch and things. Right. So what we did was

Jennifer Smith, CDE 4:12
we don't have cubicles next to each other,

Scott Benner 4:14
right? So we're going to do the basically we're going to do the the setup part on this episode like we did with the ball beginning series. Yes. All right. So what I did was I went back to my private Facebook group, and I asked people I said, Hey, if you've got to type to list some things that you'd like to see in a type two Pro Tip series, I figured that would be a good place for us to start the conversation. I would

Jennifer Smith, CDE 4:41
expect there was a lot of feedback and I think if it if it reached the broader community of people with type two diabetes that are not listeners currently, but who are searching online for some type of tidbit of information to help i could imagine the Questions number in the hundreds. It was because of the lack of information given

Scott Benner 5:06
it was really something to see how many questions came and you know, my groups a little more. I don't know, sometimes they're a little more dialed in, but it's also a good mix. It's also a lot of people are like, I don't know what I'm doing versus I have some ideas. So I sent you that. Do you have the list? I do. Okay. Yes, yeah. So, thanks to Isabel for putting all these questions together for me,

Jennifer Smith, CDE 5:26
Isabel, in order of like category, which was lovely to see,

Scott Benner 5:32
Jenny saying that because she knows if I was in charge of this list, it's just,

Jennifer Smith, CDE 5:36
well, we can originally for the original pro tips, you know, we collected a list, and then I was like, we need to do these orders. Like, we need to start here and move here and go here. So this is very nicely organized. And

Scott Benner 5:51
I was like, here's a couple of ideas. And Jenny's like, this one would make more sense in front of this one. I was like, whatever. That's good with me. But let's go through and together. Let's mark things as stuff we want to do. Stuff we want to do and stuff maybe we want to do later. Does that make sense? Give it three orders. Alright, so let's go through this list. Of course, the question was, what topics would you like to see covered in a type two Pro Tip series? So the first thing here we're looking at is meds. Meds such as S G, l two Lt. Two GLP. One and they're multifunctional use? Well, there we go. I'm, I'm already the I'm already the avatar for people who don't know what they're talking about what the hell does that mean?

Jennifer Smith, CDE 6:36
Yeah, and I can tell you that this, the meds at least from what I can see in here, the meds list is it will be extensive. And there are different categories of meds, both oral and injectables that are not insulin that are used in the type two world and the list, the list continues to grow. So it becomes even a little bit more confusing for many people, because manufacturers have figured out ways to kind of put some of the meds together in one pill form so that people don't have to take like four pills at one time. Right. So there are multiple combinations and some things get used with other things. And so yes, the meds list, this is a really good starter, but there are there are a lot of meds.

Scott Benner 7:29
Yeah, the list so I'm seeing here GLP one is a is a category of drug right? That could be like trulicity correct by Yeah. ozempic Victoza, like okay, and,

Jennifer Smith, CDE 7:40
and the same for the stLt, twos. All any of these even things like the oldest, you know, being Metformin. There are even combinations that include Metformin, but are not just solely Metformin. Okay, so,

Scott Benner 7:54
alright, I'm seeing STL T to lower blood sugar and adults with type two in combination with that exercise. Okay, so we're this one is a yes, we're keeping that one that one's going to in the medical category. Oh, okay. This person wants to talk about GLP meds, that insurance company is still putting barriers on, we're going to make that a secondary question. So I'm gonna go yes. Why would I not? Why does my brain work like this? Why do I just put Yes, and then secondary? Why did I not put?

Jennifer Smith, CDE 8:28
You just move it underneath?

Scott Benner 8:31
Yeah. Anyway, don't worry, the series will be terrific. Don't Don't worry about how my brain works the conversation with Okay, somebody here just says, I want to talk about all the meds so we don't need to consider

Jennifer Smith, CDE 8:43
that. And I think that's a I think that might even be a good first one in terms of starting the med. list list is all the different categories of meds being used for type two diabetes. And then kind of maybe we can break them down into each of the categories and have an episode on each of the different types potentially, or if there's, if they're easy enough to discuss, we could do multiple in, you know, certain.

Scott Benner 9:15
So I'm going to, I'm going to combine these two thoughts then. Cool. All right. And new medications. Oh, why? To increase protein during weight loss with ozempic? Oh, I might know about Ha, see, this is how this always goes.

Jennifer Smith, CDE 9:32
I saw your light bulb go on.

Scott Benner 9:34
I know something about this. I think there's been some studies that say that when people use some of these drugs for weight loss, you're not just losing fat, but you might be losing muscle and bone density too. Have you heard that?

Jennifer Smith, CDE 9:51
Um, yes, in in some things.

Scott Benner 9:56
It sounds like this person heard that is what I'm saying. Yeah, and

Jennifer Smith, CDE 9:59
I think that goes along with some education, which we will obviously get to I'm sure it's a category within here that was that contained a lot of questions. It's all about food and like the piece that works and why it works and why some meds work a certain way and why you should aim for more protein or leaner quality proteins along with lower glycemic or even lower carb type of meal plans. So yes, okay.

Scott Benner 10:28
And this next one is just about the weight loss drug. Now Metformin, obviously, we're going to talk about Yeah, so that just that that gets up to the top, basically, Metformin is the go to right, like you get type two diabetes, and somebody's handing you Metformin.

Jennifer Smith, CDE 10:47
Metformin is often an initial go to I mean, there is protocol, depending on where glucose levels are wearing a onesie level is at diagnosis may give the doctor some ability to navigate starting medications, many times, yes, Metformin is one of those first starting ones. And it's one of the oldest on the market, it's well studied. It's well accepted by most bodies, meaning it doesn't cause other issues. And the initial side effects of it, they usually go away within about the first two weeks of starting to use it. As you kind of titrate up doses, which is common for some of these other meds as well that are used for type two. So

Scott Benner 11:34
yes, are those things mostly gastrointestinal?

Jennifer Smith, CDE 11:36
Most of them are? Yes, yeah. Okay.

Scott Benner 11:40
wish someone would have I wish someone had acknowledged to me that Metformin made me feel sick, and alternatives, okay. I'm understanding what your blood sugar is supposed to look like, and what the medications precisely are doing and helping with? Oh, see, I think this is every place. But I think we should talk about this too. I think people hand you something like here, take this. And you don't know why. What it's supposed to be doing? What is it you're looking for? Absolutely. So we can, I think,

Jennifer Smith, CDE 12:12
I think the biggest thing that came out of prior to working for integrated, the endocrine that I worked with previously. I ended up working with a lot of the type ones eventually. But I also helped to teach the type two classes. And many of the people that were brought into the classes on that initial class, were often very hesitant whether they had had type two for a long time, or it was a very new diagnosis for them. They came into the class, almost like what am I really here for? Like, is this even going to do anything and by it was a four Class series. And by the end of the fourth class, they were so they were so appreciative to now have the information to go forward with and the unfortunate thing is that, I mean, we had room in the classes for upwards of, you know, 10 to 15 people. And oftentimes, our classes, maybe had eight, right. And I think it's unfortunate, because the classes aren't emphasized enough they are available insurance will cover a certain number of classes upon diagnosis with type two, over a year's time. But many people aren't given the opportunity, or they're just not sent to the right place, or they just aren't given the information that, hey, this is really important. I'm telling you to use this thing and telling you to act get active and telling you to change your diet. But I as a doctor can't tell you exactly the specifics of that. Please go here. So you can get the specifics, right. So

Scott Benner 13:55
well, people are so adaptive. You know, I saw a guy in the grocery store the other day, and his gait was, like bizarre, the way he walked was it was just strange. He was a young guy. And it looked weight related. And what I noticed about him was that it was just his life like he, you don't I mean, he was just doing it. And I think that just happens to people, I think you get some news, hey, you have type two diabetes and a heart. Well, I got type two diabetes, and you just kind of people just keep going. And they You said something earlier, that was interesting, like the idea of like, believing that there's something you can do about it. I, you know, maybe they're not even left with idea, like, Hey, you could impact this.

Jennifer Smith, CDE 14:35
Right? Or they've had a strong enough family history of type two that it wasn't a surprise that they were then diagnosed with it. And they have historically, there's not been grade education for those with type two. I mean, a lot of people with type one complaint about their education, but quite honestly, for the most part, it's better than type two. Yeah, no, I understand. And so they've had this history of Looking at family members, and even maybe friends, and they say, well, they really talk very much about it. They look like they're just going about their life the way that they should or, you know, my brother never did anything. And he's seems to be perfectly fine. He doesn't talk about

Scott Benner 15:16
the other side of everybody. Everyone dies. And it's all mess. And I've been waiting for this my whole life. And here, this is just what's going to happen. Yeah. So I'm going to call that generational apathy. I know, I joke that I'm not helpful, but I'm kind of helpful. And putting that under a list here. I'm making my own while we're talking under Education. Okay, so moving on to technology. Yes. person says how helpful would a libre or Dexcom be just for the knowledge because no matter what type of diabetic you are, knowing what is going on in your body is the greatest benefit. I mean, I have a person close to me who has type two. And I think I bother them about once a month about getting a CGM. So yes, yeah,

Jennifer Smith, CDE 15:58
absolutely. I mean, if there is a teaching piece that is valuable, especially if you've left your doctor's office with very little information, but on asking, you say, you know, I'm going to try to do what the doctor said in the in the littlest amount that I can, but I need information and more than these finger sticks that are cumbersome to add into my day or whatever. If somebody has just given us CGM, the ability to see the impact as we know about what things you're doing in a day, and gosh, I did this today for breakfast and did it tomorrow. And it seems better than what I did three days ago, maybe I should keep doing this kind of thing versus the other. Right? Because that's it can be really motivating, then you're blind to information, you're less likely to make a change.

Scott Benner 16:53
And it's easy to not know any of the impacts of your diet to absolutely just, this is what we've always eaten.

I know people who just grew up a certain way. And some of the foods that they think of as healthy are fascinating. And and it's I don't know, if it gets commingled in your head, the difference between health and oh, this is good. But you know, how people talk about, oh, this is a good dinner. I love this. It could just be something from your childhood that you're like, Oh, I remember this fondly. Right. Yeah. Yeah. And I think that I want to do a blend here with this, right? Because it's my belief, not around type two diabetes, but around everything, that you don't get anywhere telling someone that they're wrong, or the way they feel is invalid. Or you should make some grand change in how you do things. Like no one's doing that. No, you know, and I think that's where type twos get screwed, honestly, is that they go into a room and a doctor says, Hey, listen, it's nothing diet, exercise won't help. And you're like, great, well, I'm 53 years old. I haven't dieted or exercise that my whole life. I'm sure I'm gonna go home and do it right now. Not that that doesn't make a great advice. Like I'm not saying that. It's just not actionable for that person.

Jennifer Smith, CDE 18:29
It's not because it's not been individualized. And that's across the board and diabetes, regardless of the type of diabetes you have. There's a lack of ability. For many caregivers, not all but many practitioners to sit down and really get to know the person. Yeah. Right. You have to get to know what they are doing in their life. And what is what's their why. Why should they do this, like what in their life is so important to them, that will be better that they can continue to enjoy? If they learn how to do some of these things that you're just giving almost like a rip off sheet that's like, do this and do this and you'll all be fine, right? It'll all just magically like, work out it for itself.

Scott Benner 19:16
Here's the list of five things you've never done in your life you have no context for and you don't want to do and you don't have time for just do those and everything will be fine. And then most people are like, Oh, I guess this isn't gonna I mean, listen, you and I are seeing each other over a camera. I don't know that can you see that? I'm losing weight by any chance are probably not right.

Jennifer Smith, CDE 19:32
Probably not you and which is funny because you and I also haven't seen you in a bit of time. So usually people lose weight like facial structure wise first or within their neck. But I've only seen you standing up in person a couple of times.

Scott Benner 19:48
What's going on for me is that my daughter went back to college, and my son got a job and moved out. And you know what I have all of a sudden, more time. And, and I'm using that some of that time to cook better for myself?

Jennifer Smith, CDE 20:01
Yes, that's it and to use the machine that's sitting behind

Scott Benner 20:04
you able to get on my bike more frequently. But that's just the point is that it's just the only thing that really changes that I suddenly had a little more time. Yeah. And you can say, well, there's nothing more important than your health. And you're going to be right when you say that. But people have bills and responsibilities. And if you don't have enough time, you don't have enough time. And so that's why I want to do this, because I want to give everybody everything they need to know. And then they can cherry pick from it, because I find that's how that's how the Juicebox Podcast works. So well. Is it like I used to think, Oh, I'll lay it out here for them. And they'll follow it like a roadmap. That's not what happens. Like, yeah, you give people a ton of options, and let them go through it ala carte. So this isn't an ad, I just wanted to let you know that as of this recording, march 1 2023. The podcast already has three episodes with people living with type two diabetes, these people all listen to the Juicebox Podcast prior to coming on the show. And they shared the really amazing transformation that they went through. Right now you can hear Leanne story at episode 665. John story in Episode 688 and Michael story at 799. And just like this episode, which is called type two pro tip, and then intro, right, there's like a prefix type two pro tip intro. There are type two stories, Michael type two stories, John, type two stories, Lian. And I'm looking for more people with type two diabetes to share their story. You can find the link on the website juicebox podcast.com. To contact me if you'd like to share your type to journey with everyone else. Also, I know it's gonna sound strange, but find our private Facebook group Juicebox Podcast type one diabetes, but there's 35,000 people in there. Each one loves someone with diabetes or has it themselves. And there are so many people in the group who have type two diabetes, this is a private group where you can hang out, watch people talk, ask questions, and it's a private group, private. So you can feel confident sharing your story there as well. Oh, and I didn't mention it's absolutely free. As a matter of fact, nothing about the podcast will ever cost you money. And I don't believe that your health should cost you something. It's not right that you should have to pay a coach or a mentor, or take some sort of a class or pay for some content that's behind a paywall. I don't believe in any of that. Everything you need to know is here in the podcast. If you want to ask somebody a question, you go to the free Facebook group where there are 35,000 people waiting to answer your questions. It's not cool, when people take your money to learn about diabetes, I'm not down with that. It shows that supported, I'll take care of paying for it, you just go ahead and help yourself to whatever information you need.

Jennifer Smith, CDE 23:10
You know, what I've I've kind of seen is that the more newly diagnosed who've joined your group and started listening, they seem to be the ones that are going through it in a in a way that moves from one topic to the next. It's more those who have had diabetes a long time and are no coming. And they're like, Well, I know how to basil test. I'm having a problem with this. Yeah, so they pick that topic, they go through it, they get the answers they want, and then it might drive them to another episode about something that's also relevant. But that's, that's the benefit of being able, you know, to go through a list that's very clearly defined.

Scott Benner 23:49
And I want this to help people who not only are in a situation where they're like, Look, I need to use insulin, right? Or maybe I'll try some of these other injectable meds and see how that goes first. I don't just want to help those people. I want to help people to who might hear something and think, Wait, potatoes, I just don't eat potatoes. Like you don't? You don't know, like you don't know what people don't know. Right? And so laying it all out there for them. And I I'm gonna tell you this right now, like if this is popular, I don't first of all, I don't care if it's popular or not. I'm gonna put it out because I think it's the right thing to do. And I'm going to put it within my within the Juicebox Podcast. But when you and I get done, if we ended up with something that is so just iron clad helpful. I might open a different podcasts up for type twos and just drop the information in there and leave it like a binder for them. Yeah, you know, and maybe I won't put episodes into it very often, but at least they'll be able to get through it easier.

Jennifer Smith, CDE 24:50
And I think that would be beneficial because from a from a one site access point. I think it would be fine to have both groups of information in one place. But I think if there is the potential that another group of interest is going to end up coming out of it, then there are a lot of topics and things that gets discussed, that are not specific, they're not worth the time of someone with type two is not all of them are. They're not as usable for that population. And or, like I said about the medications, there are so many different medications that are not going to be discussed in the type one world, but are very relevant for someone to be able to discuss with other people with type two, in you know, in that category, so

Scott Benner 25:39
am I also I bring this up under the technology banner here of our conversation, because sharing online is also technology. And there are going to be type twos who can get into that type one group. And I've almost stopped thinking of it as type one group, if I'm being perfectly honest, I think of it as a diabetes group. Because I, what I've noticed is that if you're have type two diabetes, and you're using insulin, it's pretty much the same game as having type one. And so it a lot of this stuff translates and as valuable. From both sides,

Jennifer Smith, CDE 26:17
I think to this technology category to what I see there's a lot about CGM. But I think in terms of a gadget, quite honestly, there's a lack of education about glucose meters. Yeah. Right. And that may be something in fact, it it is along with medications, it gets prescribed. But there's no education in the office about what to do, what the proper time of checking your blood sugar is. And even it may be this is further down. Somebody may be asked about it, but like, what do you do with that information? Yeah, great. My blood sugar is 133. Is that right is do I have to do something about this? Should I even take my medicine, it looks like it's it's a number where it's supposed to be. And I think, you know, years ago, when I worked with with more type twos in our endocrine practice, we often used to do around seated around glucose meters, teaching people the right times to check, okay, and what that then means and what they can do about it. So I think that's an important piece to bring in. Because while a CGM would be kind of pie in the sky for anybody who has diabetes.

Scott Benner 27:34
It might be because it might be a cash option when you're type two, right? Unless you're using insulin,

Jennifer Smith, CDE 27:39
depending on insurance coverage, and all of the things that have to get checked off in terms of prescribing it, and then what the coverage would look like. Yes, it may be a question of even being able to get

Scott Benner 27:52
it. So I added BG meter when, how and what do I do with the info? Yes, okay. Yeah, because the rest of it is like you said, people, I mean, it's not wrong, that CGM would be an amazing benefit for you if he had type two diabetes, but your insurance might not cover it as what like right

Jennifer Smith, CDE 28:10
here. Right. And there is, I mean, in terms of technology, and this kind of goes with meds and technology, quite honestly. There, there's something that bridges into both, and that would be the insulin pens, right, that if somebody with type two does use insulin, then there is actually technology that can help them use it better, and to collect the information better and make more even, I guess, evaluate their information to go back to their doctor and discuss. I mean, there are even some insulins that work with a prescribed type of device or app that allows the doctor to discuss back with the person how to titrate their doses, which is quite nice. And again, I would expect that many people don't even know that that's an option. Yeah. Okay.

Scott Benner 29:09
So yeah, alright, so diet, diet discussions, including by the way, diet, to me means what you eat, I'm not saying you're on a diet, like so. I hate the word diet. Yeah. I don't know what to say here. Give me a better word.

Jennifer Smith, CDE 29:25
Well, what are you putting in your body when you eat? You're putting fuel in, right. So I I call it fueling plan.

Scott Benner 29:33
Jenny, I've changed the fueling plan. So yeah, I'm not going to be able to change everybody's I'm not smart enough to read this and change out the word diet for fueling discussions, including Whole Foods, plant based options, intermittent fasting for weight loss and reduction of insulin resistance. Food, if it is good for you can be medicine for type twos. I mean, food can be medicine for anybody, honestly. And so that's a great one. We'll leave that there may be a more targeted how we eat conversation revolving around type two things

Jennifer Smith, CDE 30:07
similar. Yeah, that's

Scott Benner 30:08
I think that's similar. I think I'm going to take that out. So it doesn't get confusing because it's the same as the first one. How to meal prep way foods checking packaging. See, that's a big one. I always ignore that. The people maybe don't know what they're looking at when they look at that information on the package.

Jennifer Smith, CDE 30:25
Right, because it goes along with again, that rip off of eat food, eat better food, or an old one. And I have still heard it as don't eat white food. What does that mean? Right? Right. I mean, the inside of an apple is white. Right? Does that mean I should no longer eat apples? You're saying we're

Scott Benner 30:47
some slight thumbs tight TOS get told don't eat white food? They can't just say potatoes and white bread.

Jennifer Smith, CDE 30:54
Don't eat don't eat white food. Yeah. And really like white food? Come on.

Scott Benner 30:58
Yeah, that doesn't make a ton of sense having the tasty healthy recipes. And info on lower carb alternatives are huge. Well, I'll tell you, I agree and rub up against the idea of great recipes. I agree. Because I think if people had better tasting foods that were healthy, they would eat them. I also think that most people don't cook. I don't think as many people cook, as you imagine, you know, where that cooking, where the cooking is not the thing that I'm watching on chef on Netflix when I'm seeing Jon Favreau and that other guy throw together a thing you don't even like, right? I don't think we all cook like that.

Jennifer Smith, CDE 31:35
So now might be in and of itself. Maybe it's it's a whole kind of discussion is just like what does it mean to prepare a meal? And what does that have to be like, as you just said, it's not like watching Top Chef or whatever, the one where the mean guy talks to people. What's his MC? Gordon, there you go. Yeah, he goes name off the time, like Hell's Kitchen or something like that, right?

Scott Benner 32:07
Like for cooking shows,

Jennifer Smith, CDE 32:09
or whatever. But it's all the same concept of like, I think you're right, people don't think, gotta have to cook up, like cooking becomes this elaborate like, three hour process. And cooking doesn't have to need to be like that. Doesn't have to

Scott Benner 32:25
I also think that that idea stops people and I just I believe, listen, I don't know how, why believe us. I don't believe that many people. I just I think it's time like, I know what it takes to make a meal. The other night, I said to my wife, we're gonna have this in this for dinner. Is that okay? I said it's two or three o'clock in the afternoon. And she goes, Yeah, that's fine. I was like, great. That's dinner time. I'm like, I'm gonna start cooking because I don't want that anymore. And I was like, Okay, what do you want? And she goes, Don't worry about me. I'll figure out what I want you go ahead and make that for you. And I said, Well, you obviously don't cook very well, if you want me to make two meals. I was like, I don't have time for that. We have to go to bed at some point, you know, and I have the luxury of working out of my home. Yeah, and being able to say the days over 15 minutes glass of water, I'll start cooking dinner, right? Like, I don't have to get into a car and drive somewhere. Or go pick up a kid from something or something like that. I just don't think I think there's a way to help people prepare foods that will help them that doesn't leave them thinking I can't accomplish this. Correct, right. That's what I'm so I absolutely want that. Next up next thing here person says low carb makes a big difference. And so I'm just going to say here that because I make a type one podcast, and I have a type one Facebook group. And people who eat low carb and people who don't eat low carb love to argue with each other sometimes. I don't know if I've said this a million different ways. I'm just gonna put it here too. If you want to eat low carb, I think that's fine. I don't have a problem in the world with that. And as a matter of fact, it is. I mean, we can sit here and argue and say, Well, you need this or you need that in your diet. I don't know any of that. You are you have a nutrition background, you'll be able to tell better, but I want to dig into low carb when we're talking.

Jennifer Smith, CDE 34:19
I think it's an excellent topic, especially in diabetes in general. Yes. But I absolutely think type two is a very appropriate place to talk about

Scott Benner 34:31
that for sure. Yeah, absolutely. This next one, what should I be eating? What should I try to avoid? I want to leave that there. My doctor told me to eat lots of fruits and vegetables, but aren't fruit aren't fruits high in sugar. Good question. So I want to put that in with the what should we be eating?

Jennifer Smith, CDE 34:48
I love these are great. They're really they're very thoughtful questions and goes it really goes the distance of the missing information that just telling people to eat better and move their body.

Scott Benner 35:02
Missus Yeah, factors that help a bit I'm gonna reword this, but this person is talking about factors that help manipulate insulin resistance. So we can leave that insulin resistance and carbs sensitivity and how to cope with them. I

Jennifer Smith, CDE 35:18
think those are the kind of the same they are too Yeah, we're

Scott Benner 35:21
gonna lose one of those resistance how diet can affect it? Same thing, explanation of vicious cycles of insulin resistance in the body producing more insulin to manage blood glucose, storing more fat, causing more insulin resistance and on and on, you want to we can can we go over that process and explain it?

Unknown Speaker 35:40
Yes,

Scott Benner 35:41
we can. Can we do it within the the one before that? When we have that conversation? Do you think?

Jennifer Smith, CDE 35:46
I think that this one? I mean, it's not. It's like, it's not really nutrition specific. This is more in like, we don't even have a category of what is type two diabetes?

Scott Benner 36:01
How about if we put it in education? Because I make

Jennifer Smith, CDE 36:03
that would be yes, that would be appropriate. This, this would definitely fit within that. Oh,

Scott Benner 36:10
my God, there's so much here.

Jennifer Smith, CDE 36:12
Yes. That's a good thing. I'm, I'm really glad I'm, yeah, I'm super excited that so many people responded, which were really well thought again.

Scott Benner 36:23
And I'm gonna, I'm gonna say something here. You have type one diabetes, or don't have diabetes at all? I bet you this series ends up being interesting for you one way or the other? Of course, ya know, for sure. Fact.

Jennifer Smith, CDE 36:35
And I, you know why? I think because of the fact that type two diabetes is the most prevalent type of diabetes? Sure. And I guarantee that somebody knows someone, and could refer them or listen and say, hey, you know, I learned this, you've been talking to me about this and complaining about it, or, you know, you're bothered by this, go listen to this. Yeah. Or did you know this tidbit? You know,

Scott Benner 36:59
I'll add this. I hope this won't be controversial. But there are so many influences on us as people from marketing, to food manufacturing, to, you know, whether or not we exercise, whether or not we're supplementing with like things we need to like that kind of stuff. All of those things, impact all of us equally. Some of us get the ill effects of them stronger than others. So just because just because you ended up with type two diabetes, and the person next to you didn't, it doesn't mean that you're both not being impacted by the stuff similarly, and that's why I think it would be helpful for people. Okay, so if you agree with that, then I feel good. Common sense advice, but about not falling for all their net carb marketing propaganda. Ah, all right. That's a great one is that is that like when I go to buy? Shaved ice Italian ice, whatever, you people call it around the country. I call it water ice. And it says fat free. I'm always like, Well, yeah, now. But when I eat all the sugar, well, my body immediately turn it into fat, the story.

Jennifer Smith, CDE 38:14
Now burning it off right away? Yes, no,

Scott Benner 38:17
I got a giant cup of iced tea sugar.

Jennifer Smith, CDE 38:22
In fact, I think that that could be because type two has a metabolic component to it. For many people, I think that besides net carb things like even just label reading, in general in this category, such as its fat free, or the one that came out years and years ago was everything started getting labeled fat free and no cholesterol. Why? Why would oats have cholesterol in them? I mean, from a physiology standpoint, I know why I had the education to understand that. But many people have no idea why a plant wouldn't have.

Scott Benner 39:02
Oh, just marketing. It's just to make you think like, Oh, good. It's the you know, and here's a label that is actually helpful. no high fructose corn syrup. That Oh, yeah, there's one that's not marketing. That one's smart. You know, that one will actually help you. How about this here? Does this belong in education don't get stuck on a sliding scale. It sounds like her father in law got put on a sliding scale? And it just kind of languished there.

Jennifer Smith, CDE 39:28
No, I Well, I don't think it's I think it should be in meds. Okay. Mainly because it discusses that we know more about insulin these days. Now, it also for in this case and for many people who are in insulin who may not have the means to support some of them newer insolence, right. I think it's an important piece to discuss and talk Talk about because we don't know her father in law's story. Maybe he's using sliding scale because it's a monetary or it's a coverage based thing. And or maybe nobody's ever told him that something else is available. Yeah. Yeah, right.

Scott Benner 40:17
Okay, so All right. Next category is labeled guilt and shame. Battling stigma culture is placed upon those with type two. That's obvious now, do I? Do I do that one with Erica? Try to imagine this as a compendium, you and I talking about type two, but then sometimes they're going to be more like, I think they're going to be I think the episodes are going to be a little like a pro tip series. But every once in a while, I think they might be almost like a defining episode. But like, you know, I think I'm gonna package it all together so that people can find it.

Jennifer Smith, CDE 40:56
And then I think if, for a moment, this is a mental health, yeah, it is it and it rolls into how somebody may be managing or maybe seeking additional help or not. Right. So that it might be more of a mental health discussion. Okay. Yeah, because I agree.

Scott Benner 41:18
The second one here is I think a huge factor for type twos is guilt and shame. And it getting in the way of good medical care, I don't know how to compress this down into a snappy little title, she says, or he says, or a buzzword, but it's crippling. So okay, so we're gonna do that. And

Jennifer Smith, CDE 41:37
there are a few we may we may even be able to define a little bit of, of what that might mean. But I think it would be better with a mental health specialist. Yeah,

Scott Benner 41:47
there are so many myths about type two to come down and about shaming people. The only like that only fat people get it or if you eat garbage, you got it. The diet and exercise while he's fix it, and it taking meds but this is an interesting one taking meds is a lazy way out. And that insulin isn't boy, people think of insulin as losing.

Jennifer Smith, CDE 42:10
Absolutely, yeah. Yeah, absolutely they do. And there is, like I said before, type two has a heavy metabolic component to it. And there are some people that do everything necessary. They follow the rules, they do the you know, lean quality foods, and they exercise and maybe they've even lost a large amount of weight. And eventually, they may lose enough data self function, that they may end up needing insulin, and it is from their personal, it's seen as I've clearly not done enough, I failed in this. And now I'm on insulin. And that is it's the place I didn't want to get to or that's what I was working to avoid doing when really as we know, I mean, with type one, we're like, hey, insulin, that's like, like my saving grace, right? Like I take it because I have to take it where I think a big piece that's also not really defined well is prior to diagnosis with type two, how many people have actually had mismanaged glucose levels four years prior to a proper diagnosis. And in that timeframe, what ends up happening is that they are taxing their pancreas, right? They're taxing those beta cells to help Help Help. And in fact, many times those beta cells, they work in overdrive. They try try try to keep up. And so eventually, even with all of those stuff that they may do to get control and keep it for a while. They may have pooped some things out earlier than they realized, where they weren't doing the things that they're now doing. Does that make sense? Yes, yeah.

Scott Benner 43:56
This next one says, I discovered that I was misdiagnosed as a type two when I was actually a type one. And so we're going to talk about that, like just this. But here's the rest of what they said. And I don't think this whole I don't know if it'll call her the conversation you and I have, but it's interesting enough to bring it up here. It was a huge relief for me to be type one, because that meant I wasn't a fat failure. That is that crazy that somebody felt that I mean, it's not crazy. It's horrible. Right? And that is, you know, this person is like, No one deserves to feel like that. No, okay, if I was type two, I didn't deserve to feel like that. If I was type one, I didn't deserve to feel like that. But we do have to. I think we do have to admit that. This is how this is just what happens to most people when they get this diagnosis. Right. They just feel like I blew it, you know, right? Or my genetics blew it or right so I mean, this is I don't know how not to feel terrible about it, you know, like, but I'm gonna I want to keep the first part of it for you and I About being misdiagnosed? Yes, because it's so prevalent, but I'm going to take the rest of what she said and move it up and make sure I talk about it. When I speak with Erica to why their type twos get told insulin is bad for you. We'll go over that. Yeah, I mean, I've I've had three people on the show right now so far that have type two diabetes and have been the whose lives have been changed immensely by using insulin and algorithms by the way people are using like, yeah, like pump algorithms with their insulin everything else this one I don't know that we can figure out why or type two communities foolish shaming.

Actually, for you listening though, I think there'll be an episode of the podcast coming up, where we talk about how people talk to each other online, Eric and I are going to do I think the answer lies a lot less with the topic than you might think. Being rediagnosis lotto or type one is a story we hear more often because it's a because it feels like it's better than being typed to. Oh, so people Oh, I see what they're saying. They're saying people are happy to tell the story. Oh, they thought I was type two. But it turns out no, I have type one or I'm Lada. And that's a badge of honor, almost because you're saying you're not type two. So what this person is really saying is that is how horrible. I think what they're saying is that no one wants to be labeled as a type two type two.

Jennifer Smith, CDE 46:41
Yeah, that's what it sounds like. And I would say that there might be a step behind it that they're reading a surface level of, I'm not type two, thank goodness, I actually have lotto or type one, right? I don't think that that person who was misdiagnosed is actually happy. But what they're what they're actually and I don't even think that they're saying, Gosh, I'm not type two. Thank goodness, I'm not going to be labeled with this like thing that everybody considers is my own fault. I actually think that somebody who is appropriately diagnosed with type one or Lada feels that relief because finally they're they're getting a diagnosis. That's gonna get them the right meds to help. Yeah,

Scott Benner 47:26
relief. That was in my head. I kept thinking, are you gonna say relief? Just yeah,

Jennifer Smith, CDE 47:30
it's relief. It's I somebody's gonna listen to what I've been trying to say. And my blood sugar's aren't coming down. All this medicine you're giving, nothing is helping. I'm eating lettuce leaves, and I'm running 70 miles a week, and nothing is helping and this is the reason. Thank goodness, I have the right answer. Finally,

Scott Benner 47:49
anyone who's ever been sick, knows that. You don't want to hear bad news. But you do want an answer. And yeah, yeah, I think that's what that is as well. Okay, under medical care, how to advocate for yourself. Through misdiagnosis treated, I was treated terribly assumptions that surrounded type two. There's no shame about medication. So I think we're going to keep the AVID I mean, I'm gonna highlight the advocating piece of this. Assumptions I'm going to highlight. And I received the medical field to case owner part of it. I'm sorry, I received from the medical field and the type two online communities I was a part of, Oh, they got shame from that. Okay. Well, we're not going to be any shame in my community. So you can you can go be tight to the Juicebox Podcast, private Facebook group, if we weren't able to control. See, I also think, Jenny, I don't want to get on a tangent here. But I think that some of the things that we just talked about are why I'll give you I'll give the people listening a little inside baseball, I said that I've had this in the back of my head for a long time, and I've wanted to do it. And I plugged away and plug which I have agreed with Thank you, of course you have. And I've plugged away and plugged in by and plugged away and tried to get somebody to sponsor it, so that I couldn't afford to put it up. And finally, it became obvious to me that no one was going to do that. And I was like, Alright, I'm just gonna do it on my own. Right. But here's why. And this is what I think. I think that establishments believe that type twos don't want to be in a community together. I think they think that there's no possibility to build a thing that helps type twos because they don't want to participate in it because they don't want to be labeled. That's what I think the overall feeling is and be I'm saying I have a lot more hope for people than that. And I think that it's a build if they will come situation. I think you can't just To open up a Facebook group and call it type two diabetes support and expect that people are going to flood in because this is the stuff that they think. And then they're going to have horrible social interactions with each other that everybody's going to like everyone's. And that's going to be the end of it. But why does my Facebook group work for type one? I think it's because it began with the core of information that existed in the podcast already that we were able to bring in people who are already thinking, like, this is doable for me, you know, so I'm going to build another place. And dammit, if you all don't come, then Jenny and I just wasted our time, that's fine. But I think I think your

Jennifer Smith, CDE 50:38
wasn't a waste at some point. If you build it, people will.

Scott Benner 50:41
I really think that's what's gonna happen. So okay, I feel medical community judge type twos. Yeah. All right. Well, we'll talk about that, too. I'm sure that is what's happening. A standard,

Jennifer Smith, CDE 50:53
I actually actually think this is a good one.

Scott Benner 50:55
Yeah, I do too. Because I because people are just people. Like, you know, I know a guy who's a doctor, please it just because he goes to his job and puts out a coat, you know,

Jennifer Smith, CDE 51:12
doesn't mean that you are a good person.

Scott Benner 51:15
By the way, it's not my friend who's a doctor, I don't want him here in this and be like, That's not me, is it? It's a person I know, peripherally, who's a physician who's just kind of a jerk. And I could see that person looking at you if you had type two diabetes and being like, okay, you know, like, I really do. So.

Jennifer Smith, CDE 51:32
Right. We're not listening. And I think that's the bigger point that this comment brings up is that this person seems to have been doing everything that was the right thing. And upon entering a medical based, like setting wasn't being listened to. Yeah, right. Which is sad. So

Scott Benner 51:50
we'll we'll dig through that one standard of care for type two globally is terrible. It goes Metformin, long acting. My parents can be oh, gosh, 20 plus millimoles after a meal and they say that's okay. Yeah. Yeah. Okay. We're gonna talk about what goal I think I'm gonna mark this as goals.

Jennifer Smith, CDE 52:11
Yeah, right. Why is that seen as Okay, well, it shouldn't be seen as okay. We all know that. Well, we know that. Yeah.

Scott Benner 52:19
glacial pace of Medicare, Medicare type two seem to get finger wagging and eat better. Boy, you know, who gets hit with that to thyroid patients? Sometimes? Yeah, they just tell him like, oh, just exercise lose weight, you'll feel better. Oh, look at this. As I read down, it reminds me of thyroid issues. Okay, yeah, I'm sorry. I'm just I just like somebody agreed. Hey, hey, I'm type two and I would love to be on the show. Perfect. See that we'll have people who will come on and talk to keep an eye on that. I have. Oh, here you go. I have late stage complications from type two diabetes, and I've only had it for nine years. gastroparesis. I have moderate cognitive impairment, multiple other rare, chronic illnesses. Over the past three years, the Medicare, the medical care I've received has been negligent and appalling. Right, well, we're gonna get this person on the show. And other person. Okay, yeah. So this is, this is a person who has thoughts about how to name it so we can bring people in. When should I get a C peptide test? Oh, all right. We can throw that in somewhere.

Jennifer Smith, CDE 53:37
Yes, it's good under Oh, yeah. This is all test.

Scott Benner 53:39
Testing. Yeah. What other blood panels should be run examples to find out if your iron deficient, vitamin deficient exam, etc? Yeah, we'll do that blood panels. How to know if you have missed I have been misdiagnosed. Is there a way to figure out if you've been misdiagnosed, it's, it's just C peptide.

Jennifer Smith, CDE 54:00
Well, if you've been misdiagnosed as a type two, but you're really type one or ladder, obviously autoimmune diabetes, you are going to have some type of visible difference from that antibody based setting. Right? As many people I mean, there are previous comments in here that I was really happy to be finally diagnosed with latah or type one after having had type two for numbers of years. So there are you have to find the right doctor. And you know, as primary cares could write orders for blood tests to check but really from a, from a treatment standpoint, they really should be going to an endocrinologist. And if you have I guess the answer to this question would really be if you're questioning your diagnosis, ask for an appointment with an endocrinologist. Just because you have type two doesn't mean you can can't see. Right? You don't have to be being treated by your PCP. So

Scott Benner 55:05
yeah, all right. That's a good one. I'm gonna go through the rest of that testing stuff and go down to miscellaneous people are asked about Dawn phenomenon. I guess that happens with type twos as well. How cells you sugar for energy discuss metabolic disorder. This boy, something came up here that I was excited about. I'll tell you in a minute true, some myths about natural supplements. What's the progression of type two with age? Any difference in type two as an adult versus as a child? Is insulin helpful for type twos early on, or only later? What interact, interactions and comorbidities must type choose know about proper education on using a pump? If you're type two, I'd like to see an episode about why does it matter what type I am, I truly don't get that. I'm gonna go this is this is the thing that got I found super interesting. And I think is going to be a big part of what we end up doing. A Mythbusters episode. So the I really started thinking when somebody said that, to me, it well, they just brought it up like this, they said the most hurtful, hurtful myth that you only have tied to because you're overweight. But then I started thinking about all of the inaccurate statements about so many different things. And then I started imagining a Mythbusters series, almost like the defining diabetes series, where we take a list of things that people bullshit things people say, like cinnamon. Yeah. And we break them down about why they're, they're not accurate. Yes, yeah, that's gonna be outside of this, I think. But whoever said that whoever used that word first, you really got my brain moving. So thank you very much. And then there's weird things in here. And I'd look at this Agent Orange exposure as a cause for type two.

Jennifer Smith, CDE 57:00
Well, there are a lot of things with Agent Orange that I mean, that's not it's not a untrue. Yeah. But there are a lot of things that agent orange definitely did.

Scott Benner 57:11
So, yeah, this one says, I think COVID-19 can make type two complications worse. Oh, we can figure that out. And some other stuff here they have listed as maybe it would be interesting. I like so

Jennifer Smith, CDE 57:27
these are laughing about them. Because they're not they're not funny, but like to read them like they they make you like giggle a little bit, because it's amazing. Honestly, what, what is potentially out there in terms of Well, looking for me?

Scott Benner 57:45
Yeah. Are you ready? Is it this one? The there's a second one. There's the secret cure that big pharma doesn't want you to know about? Yes, yes, exactly. Listen, I've I've met a lot of people in my life. And the one thing I'm fairly certain of is they're not very good at keeping secrets. So and what would the cure be?

Jennifer Smith, CDE 58:10
I mean, that's, that's a great question. It really would be because I think I think in terms of the two types of diabetes, there, there a big difference in terms of why you have diabetes, type one or type two, there's even a big difference in terms of why you have gestational diabetes, right? Or any of the Modi, which never gets talked about. Right. So I mean, if there really is a big secret out there, then there are a lot of little secrets within the big secret. Yeah,

Scott Benner 58:46
I listen count on this, some doctor with a big ego would run out and yell, I've figured out the I've done it. But But aside of that, in the 15 years or so that I've been in this space, the amount of times that I've seen somebody say I know for certain that there's a cure for type one diabetes, and they whoever they is, they just don't want us to have it. It's because they're making money. And then I'm like, Look, I don't disagree that diabetes is a big moneymaker it just, I mean, if you look at science, where it is right now, we're just not at that point. You know, like, we don't know how to just turn I I've said this before, but I think we've only actually cured like eight things in the history of mankind.

Jennifer Smith, CDE 59:34
Or stop them from continuing to happen. Things like, you know, immunizations and whatnot. Right. There are things that have been eradicated because of but yeah, it's very, very few.

Scott Benner 59:45
Yeah, yeah. I mean, like, let's not talk about how we fix leprosy. So yeah, that's, I don't think that's the, if you're type one, I don't think you want to. I don't think you want that to happen. So you know, like a lot of different things. So okay, so Alright, let's just wrapped us up. Cool. This is the series we can do this right? Okay, and we're going to break it down into meds. We're going to put it so we're going to do meds education, testing allergy technology, medical care, guilt and shame. Fueling plan. Yes, that sounds right. Oh,

Jennifer Smith, CDE 1:00:21
what about activity?

Scott Benner 1:00:23
Oh, how do we forget that?

Jennifer Smith, CDE 1:00:24
That is something that is not in here? At all?

Scott Benner 1:00:28
Yes. Okay. Go ahead, Jenny. Do you need a soapbox to stand on? Or can you just say this out loud? So what Jenny is gonna about to say is that we asked a lot of people tell me how to help with type one, type two diabetes, and not one person asked about exercise.

Jennifer Smith, CDE 1:00:45
Right? Yeah, I mean, I in any in what? What kind of exercise? How do I get started with exercise? I'm already doing this. Am I supposed to change it and do something different? Or why is it not working this way? I mean, and again, it's sort of an effect of multiple variables. Right, all together. But I do think that it's interesting that there wasn't at least a question of, I've been told to get active. What does that mean?

Scott Benner 1:01:10
I don't think it's that interesting. I think it's pretty, I don't mean, because these because the people have type two diabetes that asked, I mean, just generally people in general, like, there are people who love to exercise, and the rest of us really wish it didn't exist. So I'm one of those people. I am clearly in the other category, right? And he's like, can we get this done? So I can go for a walk right now. And so but, but it is telling, right, it is telling that not one person said hey, is there anything I can do here? Because and I and maybe this is why maybe I'm being flippant? Maybe it's because doctors have so frequently told these poor people? Oh, yeah. Diet and exercise, go home, eat less and go for a walk and you'll be okay. Maybe it's because it's been minimized and marginalized a little bit, you know, same time,

Jennifer Smith, CDE 1:02:00
right. I mean, and rightly so even the information about or the questions about, you know, nutrition are fueling really, they're not, they're not as focused, because I think, again, it's a point that people are told about, but there's been no definition given to it. So many people don't even know what to ask about it. Sure.

Scott Benner 1:02:23
It's similar. It's similar to cooking to like, What do you mean, eat better? Exercise? Okay, well, what does that mean? You know, and I know, listen, other people can listen and go, it's obvious what it means. I don't know how obvious it is to everybody. You know, so, alright, so we'll, we'll put together a reasonable exercise plan for people? Sure. All right. A way to start a

Jennifer Smith, CDE 1:02:48
way to start that would be, especially considering some people might already be doing something, but if not, it's just a place to give you an idea of what to start.

Scott Benner 1:03:00
So I wrote how to start exercising, we'll talk about that. And then maybe it'll like lead from here. Maybe I can have on other people who can talk about, you know, more specific ways of handling things. Sure. But yeah, again, I just think that if you're listening if I'm, if I have type two diabetes, and my blood sugar's aren't great. And, you know, I don't know how I'm like, What am I going to, like, jump up and get on a stair climber, like yummy meals? Like, how, what the hell, you know? Right. So okay.

Jennifer Smith, CDE 1:03:31
I mean, they're, they're simple things. But I think that's a good title for it is how to get started, how to get started.

Scott Benner 1:03:36
And then we'll see what we can get make we can make out of it.

Jennifer Smith, CDE 1:03:40
Cool. Yay. I'm very excited. I

Scott Benner 1:03:43
am to actually I know that just means we're dorks about diabetes. I just think, listen, there were a couple of people in my life, who have type two, and they are just not in any meaningful way impacting it. But if you talk to them about it, they're always worried about it. They are in trying as hard as they can. And I just think that maybe, maybe we could help turn some people. Some people are walking into brick walls, maybe we could help turn them around and let them walk in a better direction. Right. Right. And I think we can definitely do this. Alright, well, we start in three days, Jenny.

Jennifer Smith, CDE 1:04:26
Yes, we do. We've got a couple of days. And then we're

Scott Benner 1:04:29
recording. Alright, we'll break this down into into easier to understand pieces for us, and then we'll get started. Thank you. Awesome. Thank

Jennifer Smith, CDE 1:04:39
you Take care.

Scott Benner 1:04:43
So that's how this is gonna go. And as of this day, when I'm putting this episode online for you, we've already recorded five of the episodes for this series, and there's much more coming. I'm going to put them out every week until the core of the series has been posted. And then we'll be adding to it as needed, Jenny and I are going to talk about the diabetes. I'm going to have a therapist on named Erica, she's lovely. We're going to talk about the psychological side of this, we're going to have more people on to talk about nutrition. I'm even thinking maybe having some chefs on some cooks to talk about cooking. We've talked about intermittent fasting before on the podcast, but I want to bring somebody back on to talk more about that. There's going to be so much here for you. I know you can do this. And we're here to help. If you want to hear about Jenny and I hold on, but if you want to go, this is pretty much the end. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. Okay, it's me, Scott. So if you're finding this show, because someone gave it to you and said, Hey, you have type two diabetes. And I'm assuming they're already listeners of the show, probably because of a type one connection. And they're sharing this with you. And you're thinking, why am I listening to this guy, and that lady talk about type two diabetes? Well, here's how you came to this. I began making this podcast in 2015. This is the ninth year of it. Before that, I wrote a very popular blog about type one diabetes. And I come to this by way of my then two year old daughter's diagnosis with type one, my daughter is 18. Now, she is living a lovely life off a college. The podcast began because I think it really began for the same reason that this this series is here. People don't get good direction about diabetes. It we didn't, we certainly did. I didn't know what I was doing. My daughter was diagnosed, my wife didn't know we were left to our own devices. And it soon became obvious that we were either going to figure it out for ourselves, or our daughter's lot in life was not going to be so rosy. So we figured it out. And then I started writing about a long line. And that became popular. And then I started talking about it in a podcast. And I started seeing how well this podcast was helping people live. And it's just bothered me for so long with people in my, my sphere and in my family who have type two diabetes and aren't being helped. And I thought I need to find a way to help them. So then one day, a couple of years ago, I started realizing that there were people listening to the podcast already who had type two diabetes, but we're figuring out how to help themselves through the type one conversations and I thought, wow, this is helping people, we could give them information more tailored to them, and find even more people and help more people. And that's it for me. I'm doing this for the same reason I started doing it. There are people in my life, they're not getting good direction. They deserve better health. And I think I can help you find it. That's pretty much it. I'm just the guy whose 18 year old daughter got type one diabetes when she was two and I started a blog and a podcast and it just took off. Jenny has had type one diabetes for well over 30 years. She is a registered and licensed dietitian, a certified diabetes educator, she is certified on tons of insulin pumps, and continuous glucose monitors. She works at a place called Integrated diabetes, which classically helps type ones with their management. But Jenny is just a good soul. And this means a lot to her. She just wants to help. So that's why she's here. You know why I'm here? I hope you I hope you feel like you're in the right place. There's going to be more. Honestly, if you're listening to this past like April 2023, the other episodes are probably already up and ready for you. I hope you enjoy them. I hope they help you. And I hope one day you'll be one of those type two stories in those episodes I mentioned earlier, I really think you can be. I really, really do. I know this isn't easy, but it's not impossible. And I know you can do it. I've seen so many people succeed with their health in moments when they just thought it was impossible. But this podcast and the people who listen to it have taught me that nothing's impossible. It can seem difficult. It can seem like your life is ending. But there's a way through. You just need to know the path to take. And I think this podcast can help you see that path and light your journey. I know you can do this. I'm excited that you're here. Please come back and listen to a few more episodes. And if you start having great success, let me know about it. I'd love to tell your story on the podcast. I know you can do this. Thank you very much for listening. I'll be back very soon with another episode of The Juicebox Podcast.

#859 I Was Just Thirsty

Dan's child has type 1 diabetes.

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
Hello friends, and welcome to episode 859 of the Juicebox Podcast.

I had a fantastic time speaking with today's guest. His name is Dan. Dan's father had type one diabetes, and one of his children now has type one. While you're listening to me, talk to Dan and have a great time. Please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. Or becoming bold with insulin. I want you guys to know I wanted very badly to call this episode animal husbandry. But I went with my heart and said, hey, don't forget if you have type one diabetes, or are the caregiver of someone and you are a US resident, you can go to T one D exchange.org. Forward slash juice box and fill out the survey completing that survey helps type one diabetes research T one D exchange.org. Forward slash juice box with my heart I did when this episode should clearly be called animal husbandry.

This episode of The Juicebox Podcast is sponsored by the Dexcom G seven continuous glucose monitor. That's right baby G seven is ready for you@dexcom.com forward slash Juicebox Podcast is also sponsored today by the Omni pod five, and the Omni pod dash. check them both out at my link Omni pod.com forward slash juicebox. And if you're getting ready to use the Omni pod five, I have a great resource at juicebox podcast.com forward slash Omni pod five. If you want Dexcom or Omni pod, please consider using my links typing them in a browser or clicking on them at juicebox podcast.com. Or in the audio app you're listening in right now. Because when you go to those links through my links, you are supporting the show helping to keep it free. Thank you so much. Let's get started with it.

Dan 2:25
My name is Dan, the father of a six year old girl that has type one diabetes that was diagnosed almost exactly a year ago. And then I grew up my father had type one diabetes. He was diagnosed, I think around six or seven. So it's been a part of my life for pretty much my entire life.

Scott Benner 2:51
Dan, you're a little far from your mic.

Dan 2:54
All right. Well, maybe I just need to talk louder.

Scott Benner 2:58
Did you get to the middle? Maybe? Like he's fading quickly?

Dan 3:03
Enough. Is it better now? That yeah,

Scott Benner 3:06
you just got soft while you were talking? Like Soft? Soft enough, though. I'm gonna say your daughter was diagnosed a year ago when she was five. And you grew up with a father who had type one. Correct? Gotcha. Yeah. Yep. Your dad have type one your entire life, or was he diagnosed as an adult?

Dan 3:23
So he was diagnosed at around six years old, I think from what I can gather from talking about the family. And you know, it took him a really long time to figure it out with him. They just didn't know as much back then.

Scott Benner 3:39
Is he alive now?

Dan 3:41
No, he passed away. About five years ago.

Scott Benner 3:45
I say I'm sorry. How long would he how old? Would he have been if he was alive?

Dan 3:50
Let's see. He was he'd be about 70. He was 65. From he,

Scott Benner 3:53
okay, passed away. So he was on. May I do the math on this. So it's 2022. Now if we take 20 from that it's 2050. More your was your dad born like in the 1950s? The early 50s. The late like right there.

Dan 4:09
I am terrible with those.

Scott Benner 4:10
I love that you don't know. But I'm just one. The one thing that

Dan 4:14
with my daughter, I will never forget her birthday now because every time I call to, you know, get some supplies or go get a prescription. I've got to give them her birthday. And so yeah, I'm bad with birthdays and dates, but I think your math is pretty close.

Scott Benner 4:27
Yeah. I'm guessing 52 ish diagnosed in 58. Yeah. Yeah. Okay. Yep. Was it a point of discussion throughout your life was it never mentioned? How did that go?

Dan 4:42
It was weird. It's very different, I think than it is now for me with being you know, the parent. We really lived in normal life. It wasn't a big deal at all. I never thought about it too much. I remember it being really annoying, as in Junior High in high school that we had to eat dinner at the same Same time, like every day, my friends would be out playing and I'd have to come home for dinner. But other than that, he just kind of took care of it. And and that was that he

Scott Benner 5:11
would not notice? Well, okay, that's what I'm asking like, what parts of it? Did you say?

Dan 5:17
Yeah, he would get low, and just get kind of crazy and combative with my mom about it. And for whatever reason, he would listen to me. And, you know, have some orange juice, that was kind of his big thing. And then he would kind of snap back out of it. And then test himself, I think the lowest, I remember him being when we were out camping once was like in the teens, and he almost almost kind of, you know, fell asleep. I guess. At that point, he was starting to fade, you can see it in his eyes and

Scott Benner 5:56
but who handled that, in that time camping who handled that low?

Dan 6:02
I think I eventually talked him into, you know, treating himself with something. And that, you know, he always had like some candy bars or something in his car. But he just he lived a pretty normal life. We had a boat went waterskiing every weekend. We camping a lot. He worked out in the woods all by himself all the time. So totally different. I really never thought about how, you know, potentially dangerous some of that stuff was with him. I just expected he would handle it.

Scott Benner 6:38
Yeah, I've two questions. So first, I'd like you to talk about what it's like, for a person who's bigger and stronger than you to decide they don't want to listen and be in that situation where you're trying to save them? How do you handle that?

Dan 6:57
I would just try to reason with him. And I think that was the difference with with my mom, he would just, you know, there's probably more there. For him to sort of hold on to and not want to listen to her advice. And for whatever reason, it was pretty easy for me.

Scott Benner 7:17
And I figured that out when you said he was out in the woods by himself.

Dan 7:24
Well, and that was the funny thing, too. It's, it seems like when he was by himself, he was much more aware of that stuff. And then when we were all together, he would be more likely to get low.

Scott Benner 7:35
focused on other things. Maybe? Yeah, yeah. Um, I'm not sure if you're moving things on the desk or moving around or not. But if you are stopped, I will start okay. So you didn't really you never had to overpower your voice for some reason, shone through to him and he would listen to you eventually. Yes, so then that's right. That brings me into my second question. Looking back now as an adult, how old are you know?

Dan 8:02
42.

Scott Benner 8:03
Looking back on that time, do you think it had any impact on you having to be that person?

Dan 8:12
Yeah, I think so. I think it's, it's helped a little bit now that with with my daughter, Eleanor, you know, kind of knowing how we had the first time with her just a couple days ago, where she was starting to get a little bit confused. And it helped. I think, being able to that. I've seen that before. And now and now with the CGM. It's so much easier. I know exactly where she's at

Scott Benner 8:39
right. Now. It's it's instant. I was wondering if you had any, like resentment or anxiety or anything like that from it, but Oh, no, I don't think so. Yeah, I liked the way you talked about it. Much better. The way it kind of prepares you for this. Yeah, yeah. Okay. So any brothers and sisters for you?

Dan 9:01
So yeah, I have one half brother. And he

Scott Benner 9:05
does he live in the woods. I'm just kidding.

Dan 9:08
Kind of my poor parents when I was born, he was he had a brain tumor. And so they had to remove the tumor from his brain and ended up also removing most of his pituitary gland and damaged his optic nerves. So he's mostly blind, and he had to take growth hormone for my whole life, you know, while he was. He's eight years older than me, but I never really thought about it until just now. I wonder if my dad's thing wasn't such a big deal. Well, because

Scott Benner 9:46
so half brother from your father, from my mother from your mother, prior marriage or after they were done with each other or prior marriage. Okay, gotcha. Yeah. And then and this goes for all the people who come on the show if I'm getting Ready to make a joke about a family member who's had brain surgery and grew up partially blind? Could you please stop me? Right? That's run me over next time. Dang. Oh, nevermind.

Dan 10:11
It's all fair game.

Scott Benner 10:14
You know what I mean? I didn't know it. As soon as you started talking. I was like, Oh, God. Like, because you said half brother. I figured your dad was out in the woods making a baby with Sasquatch. And that's where you know what I mean? Like, I built a whole story in my head. Yeah, no. Okay. Well, okay, so he and what about other autoimmune issues?

Dan 10:37
Nothing. Okay. Except for well, my dead sister. My aunt she was diagnosed with type one diabetes at about 18

Scott Benner 10:47
Let me stop you go back and take back then nothing's gonna last the question again. Is there other? Is there other autoimmune in the family?

Dan 10:54
So yes, my aunt also is a type one diabetic. She has rheumatoid arthritis. Pretty bad

Scott Benner 11:03
as to for toe really impacts her?

Dan 11:07
Yes, yeah. She's still alive. But it's, it's rough on her. A lot of pain.

Scott Benner 11:13
How about celiac? Thyroid stuff? Anything like that? No. Okay. I am fascinated, not fascinated. It's interesting. How frequently I asked the question, and people go, No. And then they list six autoimmune diseases.

Dan 11:30
Really? Didn't really even make the connection until I started talking about it.

Scott Benner 11:34
No, no, that's, that's why I brought it up. It's um, you know, Hey, did you know anybody in your family? No, no, well, not at all. We have this. My aunt has celiac. My father's hypothyroidism, my mom's got Hashimotos. And, and before you're done, you're like, those are all autoimmune diseases. They go? Well, it's crazy. I didn't know. It's just it's interesting. That's why it's why I asked the question every time because I'm trying to listen to Dan, I don't know if this is obvious or not. I'm trying to get people to ask these questions in their family privately. So they can have a better idea of what's going on with their health history. But I don't know if I'm being tricky enough to get it done or not. Well, that you put it out there. Well, you know, I mean, now I'm just saying it like, go ask your family members for God's sakes and find out what's going on. You know what I mean? Like, maybe maybe Uncle Bill doesn't just fart a lot. Maybe he's got something going on, you know? Yeah. Yeah. So okay, so your aunt has type one your brother had your father had type one. Did they have any other brothers or sisters?

Dan 12:38
There? Yeah, there were two others in my dad's family that didn't have any autoimmune issues that I know. Okay.

Scott Benner 12:49
And now, and you haven't had any? Nope, no. How about your wife's side of the family?

Dan 12:57
Hers is hard. You know how diabetes thing is? They all say that her grandfather or someone had type one diabetes, but a lot of them have type two diabetes. And so she doesn't. She doesn't really know if, if that's a real thing or not,

Scott Benner 13:17
again, fascinating that people don't know. Stuff like that about their own history. Yeah.

Dan 13:21
Yeah. They're very different.

Scott Benner 13:25
I mean, I'm not even talking about like your aunt or your uncle, like somebody you see at Christmas, and New Year's, something like that. I'm talking about people you've like that are in your life. Like, you know, Grandma, did she have diabetes? I don't know. You don't know. She's around for the first 10 years of your life. She wouldn't leave you alone. Yeah. But it's, it goes to show and your story about your father goes to show how people find a way to exist with these things. You know, yeah. Yeah. And that's really that's kind of terrific. So did you think when your dad was six, when he's diagnosed, how old were you? You're at roughly, do you have any idea?

Dan 14:06
How old was she when she was diagnosed? Yeah, she was 18.

Scott Benner 14:09
Okay, so by the team meeting, so by the time you're in your 30s, you think you're free and clear? Or is it something you've never thought of, or something you always worried about?

Dan 14:18
I was pretty sure I was free and clear. And then, when my wife and I talked about having our first kid it was a conversation that we had and talk to some different people about it. And then after we had my, my older daughter is 12. So we had her and I remember taking her to the doctor and talking to the doctor about it when she was just an infant and he was really kind of on the ball about stuff. He's he said that diabetes now they don't know if it's all genetic, or partly genetic, or he said there's some environmental factors involved, and they're just trying to figure it out. And so the optimist in me heard it was all just environmental factors with my dad and my aunt. And so we're good. We will

Scott Benner 15:14
you know, Dr. Here, he doesn't seem like he knows what he's talking about. I'm just going to pick and choose from what he said. We're gonna move forward and make my own thing. Yeah, I'm also imagining the conversation you and your wife had was having, like, you know, in bed. While you're thinking we should do this, you're like, Yeah, you're just Yes. Anything, right? Like, it's possible that kid's gonna have diabetes. Like, I don't care. So we talked about it. You think the kid loves diabetes? Probably not. Let's go. Yeah. Yeah, yeah. Pretty much how it happened. Yeah, we've all had that conversation about a condom at one point or another. It's right there. Should we just get it? Yeah, it's gonna be alright. Yeah. So exactly. But But I take I mean, listen, it, at least you thought about it and talks about out loud when you talk when you talked about it. Did you ever give over to the idea that it could happen and have that conversation? Or did you do the I'm now making air quotes with my fingers? Like the talk about it where you decided it was going to be okay.

Dan 16:16
We, we didn't decide that it was going to be okay. It was we knew there was a risk involved. And we're just going to see what happens. Yeah.

Scott Benner 16:28
I mean, listen, it's a valid, it's a valid way to go. You don't I mean, there's no right or wrong answer for certain. I'm just interested in how it happens. You know, because people say stuff like that all the time. We talked about it, but then they never told me what they talked about. So if the pick, it's my job. Yeah, yeah, yeah. Okay, so now you're still your second child is the one with type one. And she makes it to five before she was diagnosed. But did you see anything prior to that?

Dan 16:52
No, no, I really thought I thought we were free and clear. So my dad passed away when she was not even one yet. So for the next four odd years, there was no diabetes going on. And I just I didn't I really didn't think about it, you know, kind of got over the morning part with my my dad. And she was, she was good. She's super. I know, all parents are bias. But she's like a super smart kid. She's doing well and everything in life, and we're doing good, you know, and the whole pandemic thing kind of started and we went through that, and

Scott Benner 17:37
anybody would get COVID.

Dan 17:41
Our whole family got it. So we were all vaccinated. And my wife and I had our boosters. And we had a trip coming up to go to Disneyland, actually, that I was just thinking about touching all the stuff, all the kids stuff at Disneyland. And about a month before our trip, Eleanor was just kind of being whiny, and had a little bit of a runny nose and almost out of spite. Like, we'll test you for COVID. And it was positive. So we all went down, got the test done. And both the kids were positive, my wife was never positive. And I was just walking around Walgreens with no mask on feeling great and got the email that I was positive. We should probably go home I guess.

Scott Benner 18:31
Did you do you think you got it from Mickey Mouse or you got somewhere else?

Dan 18:35
Well, so that was before this word. We're actually glad that we got it. We don't have to worry so much. Disneyland. So I don't know where we got it. You know, school? Probably. Yeah, it's picking stuff up.

Scott Benner 18:47
All that learning mess and everything. Oh, yeah.

Dan 18:50
Well, especially at the kindergarten age. You know,

Scott Benner 18:53
you think it's possible. It's okay to skip that. And maybe you could count to 10 at home? Not now kindergarten teachers like I do more. Now. I know you don't. I'm just I'm just it's fine. I'm just saying. Yeah, if you're gonna skip a grade. I mean, I would think one of the easier ones to manage personally might be the lower grades. I guess what I'm getting from

Dan 19:14
there might be easier to catch up from that. Yeah.

Scott Benner 19:18
Well, I mean, you might be able to handle on your own. I also love when people say their kids are smart. And I'm like, I don't know how smart you are. This is all perspective. People like like, it's brilliant. I'm like, smarter than you. Maybe.

Dan 19:32
She scored. So she's in the 99th percentile. You had her test things. No, they do the standardized tests, standardized tests. I was teasing. We actually did. All right. I said no, but but we did.

Scott Benner 19:48
How many times you're gonna lie to me in the first one.

Dan 19:52
To get into the school that she's in. We had to do an IQ test. So she goes to this school. That's an old charter school that's looped in through public funding now, and they can still use their old requirements so they can be selective about who they let in. And so we did we did have our IQ test and that was also

Scott Benner 20:15
high. So you get throw over that word, the wall that walled garden, Dan, get her back there. But the other smart Yeah, let's Yeah, exactly. Don't get too excited. I was one of those kids when I was little, and I make a podcast now. So you don't I mean, yeah, don't get too excited. I don't think the money is just gonna start falling over the walls.

Dan 20:33
No, no, I know. I already disappointed me several times with telling me what she wants to do when she grows.

Scott Benner 20:43
Now we're getting to it. Dan's willing to say he's been disappointed by his five year old. But what is what does she want to do?

Dan 20:51
Well, I don't remember it's been all over the place. She Well, she wants to do what I do. And what my wife does, which I guess are, are both good. My wife's a veterinarian and you'll get a kick out of my job. I know you get a kick out of people's weird nature jobs. I own a company that installs fish tanks, and does fish tank maintenance all over the area. You and

Scott Benner 21:12
you own a company. I own the company when's the last time you had your arm elbow deep in a fish tank.

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Dan 26:06
Yesterday,

Scott Benner 26:07
okay, I'd like to get you to a place where the other people are taking care of the work. But I bet that sounds good. That sounds well lucrative actually.

Dan 26:16
I have three people that work for me, and they go do most of the work especially since the COVID stuff. My job was flexible, and I was able to stay home with the kids more than my wife. And so I sort of transition to working more from home. But all of the all of our fish tanks that we that when I ordered fish, they come from all over the world. A lot of the saltwater fish are caught in the wild. And so I have to put them in fish tanks first to make sure they're not carrying parasites that delete fish food and all of that stuff. So those are all in a room in my garage. And so that's where I had my hand in a fish tank yesterday. I

Scott Benner 26:57
see. I have not. I used to have tanks because my dad had them and I have not had one since my little brother poured I used to have had a probably like a 55 gallon saltwater tank. It wasn't huge, but it was great and ran really well. It had live car oil on it and all it was really great. And one day my little brother put when you want to smell nice Dan, what do you spot cologne, he put Kelowna to see what would happen. Do you want to guess what? Oh? Yeah, that probably wasn't good. Yeah, killed everything pretty quickly. Yeah, yeah. And then we had good.

Dan 27:36
We had a, we do a lot of assisted living places. And one of my clients called a while back and said that one of the old guys there dumped his milkshake in the fish tank. Fish like it. Yeah. She wanted to know what would happen. So I said, I'm not sure.

Scott Benner 27:53
Here's what's gonna happen. I'm gonna be over and send you a bill. Don't you worry. Yeah. Get lost right now. I just never had the I did not have the fortitude to do it again. It was it was a lot of work and an expense. I was young, you know. And I just but my son asks me about it pretty frequently. How can we? Yeah. And he's never had one. And he asks about it. It's really, really kind of interesting. So yeah. All right. Well, that's, that's how did you get into that, by the way?

Dan 28:22
In college, I switched around a couple times what I was going to major in, and I ended up majoring in fisheries biology. And I was going to do like, research, you know, streams and fish. And

Scott Benner 28:38
when you like that you're mad at your parents when you chose that.

Dan 28:42
Yeah, that was originally gonna do physical therapy. And then

Scott Benner 28:46
I'm trying to picture I'm trying to picture 15 years from now little l&r comes up to you and says she wants to get into fishery sciences. You go in oh, wait a minute. Who's gonna pay the bills? Yeah. You know, my very I don't I've never said this before. My very first job was at a pet store. Oh, yeah, I was 13. And the local guy had a pet store. And we were always in there buying fish and stuff like that. And one day, I think he saw us as a nice, a nice revenue stream. And he thought, Well, I'm like, just basically I was free labor for fish. I basically worked for fish. Now that I think, I think back on it. Yeah. And you'd go in and clean tanks, and we're on the register and stuff like that. And I know people were like, 13 year olds can't have jobs, but it was the 80s We could do whatever we wanted. So you know, go in there and work and and then he'd pay me at the end of the week. At the end of the week, I'd basically end up paying him all my money back for whatever I bought during the week. It was brilliant. Actually, it was a mad genius, wasn't it?

Dan 29:48
Yeah, but yeah, that's a great job. Another job in college.

Scott Benner 29:51
Now, there was a couple things I wouldn't do. i If you bought a snake while I was working by myself. You got the snake out yourself. It was self service. I was like, that's fine. Go ahead and get it. I'm not doing this.

Dan 30:03
Yeah. Not a snake person.

Scott Benner 30:05
No, no, no, no, not in any way, shape or form. It's not happening for me. Okay, so Eleanor shows, signs, symptoms, anything. What's your first look at diabetes?

Dan 30:18
Yeah. So her kind of diagnosis story. She went to Oregon when kids turned five, I don't know if you are aware of this, they can fly by themselves on the airplane. And so she wanted to go on a on a trip. So the first she went with just my mom, my mom took her to Oregon to see some family. And I went to the airport to pick them up when they got back. And my mom was just saying that she was just thirsty the whole time just going through bottles and bottles of water. And it just kind of had that feeling. When she said that I just sort of knew

Scott Benner 31:00
well, did your mom not know from your dad? Well, that's

Dan 31:04
why she was telling me is she was kind of thinking it too. But it was like the first thing she said to me. I was like, hi, thanks.

Scott Benner 31:14
How was your trip? I think the kid asked the diabetes. Yeah. Still in the, in the runway, little ball thing coming off the plane, you know?

Dan 31:24
Right. Yeah. So that the following day, she was flying by herself with her sister. So let's see. They were five. They were she had just had her fifth birthday. And Kimberly was probably 10.

Scott Benner 31:41
And you're coming off like a real hippie here with this flying alone thing. Go ahead. Keep talking. I'm interested. Yeah.

Dan 31:45
So. So we sent them the next day on the plane. In hindsight, I would not have done that. But they flew to see some family in Las Vegas. And we asked my mother in law, you know, about halfway through that trip? If if it was still going on? And she said, yeah, she's definitely been drinking a lot of water and peeing a lot. But we were still in denial. We're thinking it's hot in Las Vegas. And she's five. Yeah, so it's just a habit. But my mother in law has type two diabetes and had glucometer. So we said, Well, can you just test her? You know, finger poker? Well, we're on the phone. She couldn't figure it out. She doesn't never use her. glucometer I guess. So. She's poking. We can hear screaming in the background and your mom is the kids screaming? Okay. Yeah. Yeah. My mother in law. I think she was putting the blood on the on the like, stick, you know, the test called test strips, and then putting and then putting the test strip in the glucometer. Oh, wasn't working

Scott Benner 33:01
it? Yeah. No, it has to go in first. I've never said that out loud before. I just thought people knew. But

Dan 33:07
yeah. So we just said, alright, you know, we'll just figure it out when we get back. And then her uncle kept telling us just how much she was eating and weird foods. She ate like a whole jar of pickled okra, and like, five hamburgers. And so it was getting to be where, you know, we really

Scott Benner 33:30
she was feral at this point. Yeah. Yep.

Dan 33:33
And so it, it was a busy little time that we had planned. She came back in two days. After that. We had rented this RV. We were gonna go RV camping. And so we called the pediatrician and told them what was going on that we'd like to get her in there and the receptionist. She's like, so she's just eating a lot and drinking a lot of water. City and she's like, Okay, well, I think you're fine. You know, have our triage nurse call you and say as I said, you know, we're going to kind of remote area. I'd really like to get her in. I'm going to pay you for this right now. But we had to fight to get her in there and get her there.

Scott Benner 34:15
You had to fight through the reception people. Yep. No medical people whatsoever at that point.

Dan 34:21
Right. Yeah. Again,

Scott Benner 34:23
I joked about this a minute ago, but I need to ask are you a hippie? Upper Midwest, anything or upper? Right, like Northwest

Dan 34:35
that's where I grew up. My dad was in the timber industry there so I couldn't be a hippie because he's you're cutting all the trees drying the forest.

Scott Benner 34:46
Okay, but I'll tell you I have to tell you like no judgment. The putting kids on a plane thing is a leap for me I don't think I can make so I really I just assumed you're a little high when he did it. That's all but it's

Dan 34:59
no I feel it's the first couple of times it was I was nervous. But

Scott Benner 35:04
yeah, that's what I mean. It's, it's cool. Like, thinking about it now I'm like, take them to the airport, you watch them go down the, you know, the little loader thing, they go into the plane, there's people there, you got to think they're relatively safe. And then, you know, they get off, walk off and there's a family member, it's actually makes a ton of sense. I just don't think I could do it. And I don't know why. Yeah, as I'm thinking about, it's interesting.

Dan 35:26
You have to let go a little bit. It's,

Scott Benner 35:28
you think I'm uptight? Maybe? No, I'm saying

Dan 35:31
a person has to be able to, you know, it's like, you know, it's like, when you have a baby and you leave them, go on your first date, or whatever thought you're gonna

Scott Benner 35:43
say, all by themselves. You know, sometimes you leave a kid in a Strawbridge and Clothier or something like that for a couple of minutes while you go get a pretzel, you know, as long as they're sleeping in a pile of soft laundry or something that they're really it's hard for them to hurt themselves. Strawbridge and clothier? What was that? Straw bridges? Did you have a clover near you when you were growing up? was like an offshoot of straw bridges. Is that is that affiliate? No. No, sorry for anybody who doesn't know what that is? A big store. There you go. Okay. Yeah, yeah.

Dan 36:19
Yeah, so we got her in, and then off to the emergency room from there. And, of course, you know, even growing up with my dad, I still didn't really know how diabetes works. So we're like, let's go through the Wendy's drive thru. grab some lunch on the way to the ER, because she'll probably never get french fries again in her life. And so we did that. And

Scott Benner 36:46
well, your your expectation to diabetes, I'd have to imagine was somewhere near we're gonna have to buy orange juice. And it must not be that bad, because I never saw my dad do anything with it. Really?

Dan 36:58
Yeah, yeah. It was still, you know, pretty mind blowing learning about it. So my dad, he did have some things. He, in his 40s had a lower leg amputation, which definitely changed the way he did life. And then he had a heart attack when he was older. And

Scott Benner 37:26
yeah, I didn't expect I didn't expect that he died in his early 60s Because he fell out of a window. I figured if you're diagnosed with diabetes in the 50s. And you know, you're basically because what you described down. I mean, listen, people come on all the time. They tell their stories, which I think is really, it's amazing. But you described basically a time and a place where people didn't really understand diabetes, too. Well, and in all honesty, if your dad wasn't falling over, he was winning. And that was it.

Dan 37:52
Yeah, yeah. Yeah. When I I remember, when I was young, he was still doing that. It was like a test strip that you pee on. And then you compare the color to the thing on the little jar of test strips, and then that's how you figure out how much insulin you need. And

Scott Benner 38:11
yeah, and now you I mean, do you have any technology with your daughter?

Dan 38:16
Yeah, she has a Dexcom. And then she's on the T slim with the control IQ. Okay,

Scott Benner 38:22
so a completely different world. And now so different. Yeah. So when you look at your daughter's care, and you juxtapose your memories of your dad, you realize, I mean, it's, I guess obvious, right?

Dan 38:34
Yeah, that's a big thing for me, after, you know, seeing that, it definitely took years off of his life and some other stuff that you know, if you can control it as much as possible, you know, hopefully prep prevent a lot of those side effects.

Scott Benner 38:53
Alright, I'm gonna test you real quick. Dan, would you live feed a lionfish? A goldfish?

Dan 38:58
Oh. No, not usually, unless they're not eating.

Scott Benner 39:04
flakes are okay for them. So

Dan 39:06
I would do like frozen prawns and fish things like frozen shrimp that are thought out? Yes, squid, stuff like that.

Scott Benner 39:15
Ah, interesting. Okay, I was just checking. I'm testing you down. I was just testing from little bits that I remembered from working in a pet shop. Let me see 2333 4337 years ago, so

Dan 39:28
yeah, yeah, no, that's Well, usually you can only get like live goldfish and that's not very good for them. It'll cause a lot of fat buildup in their organs and

Scott Benner 39:39
really look at you know, and stuff about your child. Yeah. And your wife is she like a buttoned up veterinarian or she one of those hair going in 16 directions. I love the animals veterinarians.

Dan 39:52
She's kind of in between. She's a she's just dogs and cats. That she does and she is a works for someone that owns the practice. There's two of them there. And you know, I think, especially when she was younger, she loved the dogs and cats, but yeah, working with all the dog and cat owners might have changed that slightly.

Scott Benner 40:16
I have a question when you realize that your girlfriend is one day gonna have to put her finger in a dog's butt regularly do you think she's, you go like she's applying right like this girl. This girl will be okay.

Dan 40:27
Well, that's, that's for the vet techs. Oh, when I met her. She was already doing.

Scott Benner 40:35
How was your day? I had my finger and six dogs. But yeah, don't worry. I was just expressing a gland. Great.

Dan 40:43
Gosh, she had her arm. So at her school. They had this cow that had a spot where you could stick your whole arm

Scott Benner 40:53
and stuff. Like you might have found that line. Hold on.

Dan 41:00
So it sounds like a sealed off area and the cow that that's could stick their arm in

Scott Benner 41:06
we okay, go slow. I gotta get my breath back. I actually thought oh my god, here we are 800 episodes into it. I really figured out what I don't want to talk about. So not not in the cows. orifice. Right. Okay, the cow was surgically opened. Yes. So that med so that students could Oh my God, that's fascinating. Yeah. Wow, cow has done a real service for other cows. No, I think it has a plaque somewhere the school it should.

Dan 41:38
It should it should have a statue. Yeah. Okay, monument.

Scott Benner 41:42
I've been serious. That's I know, it's, I know the cow doesn't. I mean, I know. I'm guessing it thought This isn't good. But I'm saying that contextually? I don't believe it knew it was helping other cows. But that No, really. That's kind of lovely. Actually. Wow, that's that's really something else. Thank God. You didn't say what I thought you're gonna say. I just, I was in a panic. I started feeling like a little air when you started like, Oh, don't please don't tell me about this. Nice living. We're happy we married her all that stuff. She getting the bills.

Dan 42:17
It's you know what she she is the pandemic. They have never been busier. You know, so many people have

Scott Benner 42:27
paid? Literally. Yeah, they probably dogs and cats. Oh, people buying more animals? Yeah. So I thought maybe they had time to pay attention. But that was just me being kind to people, I guess. Well, it's Yeah.

Dan 42:40
And now it's the opposite. People are going back to work. So there's a lot of animals that are having separation anxiety, you know, dogs that are used to their owners being home all day.

Scott Benner 42:51
And now they're peeing on everything. Now,

Dan 42:53
yeah. Now they're not

Scott Benner 42:55
telling your wife about it. She's like, Yeah, exactly. What's wrong with my dog? Leave me alone. My kids got diabetes. I'm done. I'm out. Check out how does your daughter handle type one? Is it? Is it smooth four? Is it choppy? I, I see people online a lot, who talked about? It's, you know, it's nice that they share, like some of the problems their kids have. But people don't talk about it. When they come on here. It's the one thing about the podcasts that I still wish went slightly different than it does is that a lot of empowered people come on. So their stories are generally like, we got this. But I mean, how is that for her?

Dan 43:35
It's been a bit of a roller coaster. So when, when she was first diagnosed at five, she really didn't understand what a chronic thing was. And so I remember having some really, really hard conversations with her. When she'd say, you know, I think I'm better. When am I going to be better? You know, I feel fine. And she told me one time, we're driving around that. She's like, I know, all that water and stuff like that. But I think I was just thirsty. And I don't think I have diabetes. And so I think that part was harder for me. But, you know, you just kind of see in their eyes, they're trying to understand what you're telling them

Scott Benner 44:25
it and she's not my daughter and it was hard for me to hear. So yeah.

Dan 44:30
And then then it just became part of life. So about I think maybe a couple of weeks to a month into it. We got the CGM and you know, that changed things a little bit because you know, the way that we we treat her and then every time things change for her she gets it gets hard again for a little while. She didn't really want to stab this thing into her arm and then You know get used to get her clothes off and on with that on has been rough. She's really good at it now. But you know ripped a couple off and that hurts and the at all the adhesive and, and stuff like that she's had to get used to just like we have. And so and then the shots we were doing, you know, injections, multiple injections. For the first six months, we tried to get a pump, but got denied by our insurance and had to go through the whole appeal process. So we figured out we found those I ports. And that worked really well right with the CGM because we were able to give her a little bit of insulin for a snack if she wanted it. Or, you know, if we just messed up the Bolus and had to make a correction or something like that we could do it without actually having to stab a needle into her.

Scott Benner 45:53
Yeah. Hey, free plug iport from Medtronic diabetes. Oh, yeah, sorry. No, no, no, I they're not. They're a sponsor for something else. But not for this. But we don't talk about I poured enough, right. So this little port that your daughter wore, and then the needle, the actual syringe went into the port, so you weren't technically, like you weren't stabbing her over and over again. So you're saying, if she wanted to have a couple of carbs, you could pop a half a unit in there or something like that without actually having a sticker?

Dan 46:18
Yeah, it was life changing when we tried it. And nobody told us about it. We might have seen someone mentioned on the on the Facebook page. Yeah. But like the medical staff. They're like, Yeah, sure. You know, you want to try it? Well, we can write you a prescription but not really into it at all is

Scott Benner 46:38
nobody else if you liked it, and and it was valuable.

Dan 46:42
It was amazing. Yeah, good. And so that got us by until we got the pump and then then the pumps a whole nother thing, you know that she took some getting used to and didn't really want it at first and but now we've, we've adapted and most days are fine. We've had to I think she just got out of the honeymoon period. So I've like been doubling her Basal insulin. It feels like it's take so much now. I'm still struggling with it. I almost they're

Scott Benner 47:18
hard to get over the number change, right?

Dan 47:21
Yeah, it's, you know, it's kind of scary. And I don't know why. Because every time I do it, it ends up just making it better. But it's still a little, it's just intimidating to, to add that much more. You know, she, when she got the pump, she was only barely using like 10 units a day. And it's just probably in the 30s. Now,

Scott Benner 47:42
yeah, it's interesting. Like I get it, like, I get it MDI, like if you are using three units a day, basil, and you're, you know, multiple daily injections, and then suddenly it's six you think, Wow, I'm going to put in double the the insulin. I can't get it out again. But I mean, when it's when it's a pump, you'd change the setting up if you start seeing it go the wrong way. Just, you know, have a snack and put it back. Yep. Right. Yeah, but I still I still get the eggs. I mean, get it by get it. I mean, I see it happen to a lot of people. Yeah. And then there's something about the numbers that freak them out. Like,

Dan 48:19
yeah, I think with repetition, you know, it becomes these get a little easier, right? But so yeah, and then there's still the stuff a couple days ago, we switched the kids rooms. And we're kind of letting them decorate stuff. l&r. She was super excited and just kind of bouncing off the walls and she hit the bathroom hinge and ripped her Dexcom off and it just took the wind out of her sails, you know? So

Scott Benner 48:51
how do you how do you handle that? Do you you come in with the big enthusiasm don't worry about it, we'll fix it no problem, or do you let her feel bad about it? Or how did you handle that?

Dan 49:02
I tell her we'll fix it and it's okay and you know that I let her talk about it and say I understand but you know she she'll hit me with like the Sometimes I hate my life sort of thing. It's it's hard to to you know

Scott Benner 49:18
kids IQs too high do you understand times let's get you a nice kid with an 80 IQ just goes everything's fine don't just kids kids thinking around the deeper corners we don't know yeah I can everything difficult for you. Well, so we had

Dan 49:37
just gotten a new a new transmitter for this one and so this time i i Let her I was like, Do you want to put a Dexcom on me first you know before we do your so I am wearing one for the first time which has been interesting, but that helped a lot. She thought that was pretty fun.

Scott Benner 49:53
Okay, hey, interesting, Dan, like you think you have diabetes are interesting to see how a functioning pancreas works.

Dan 50:00
Interesting to see how a functioning pancreas works. And it also kind of kind of sad. You know, it's so easy for me I can pretty much do whatever I want

Scott Benner 50:13
to eat something exciting happens, right? It just Yeah, nothing. Well, I'll tell you that I think I've worn a CGM a couple of times, and just seeing the ebbs and flows and how different foods impact, I found it really valuable. It changed my perspective a little bit to about meal times. You know, I, there would have been a time in my life where I just thought that any rise in blood sugar was a mistake. And now I get me talking about all the time but I you know, I think of like after a meal, I don't want it to go up. If it doesn't, it's great. If you don't get any kind of a rise, and you don't get a low later. Be right on. That's perfect. But if you go 131 40 And it comes back in 30 minutes, I don't I don't think about that the same way as I did years and years ago.

Dan 50:59
Yeah, yeah. Yeah. It's interesting to see that and with me. Sometimes, there's not even any meal correlation. I'll see my blood sugar go up to whatever 120 And then go back down and like it. What's That was weird.

Scott Benner 51:14
Stress, anxiety. Yeah. Yeah. Could be and

Dan 51:19
the lows too. You know, I'll get down to the upper 60s.

Scott Benner 51:25
And you feel fine.

Dan 51:27
Oh, yeah. Yeah, I wouldn't know if I wasn't didn't have this on

Scott Benner 51:31
right. Yeah. Somebody came on years ago, a long time type ones. First time I heard somebody say that. Every person experiences blood sugars in the 60s like once or twice a day or and sometimes for extended times, people without obviously if you have active insulin working manmade insulin, it's a different concern. But it was that was another thing that I heard that was valuable for me. You mean like my blood sugar gets down to 65? Sometimes, and you know, no one runs around goes crazy. Yeah, helped me a lot.

Dan 51:59
Yeah, yeah. You don't freak out quite as much when?

Scott Benner 52:02
Yeah, I mean, if my blood sugar 65 I don't. I'm also not like riding around with for it, you know, four units of of NovaLogic in my arm or something like that. Right? I'm but yeah, it's not an apples to apples comparison. But it is enough to give you different perspective.

Dan 52:19
Yep, yeah. Well, what my wife and I do with that, you know, if Eleanor is starting to get down into the safe, lower 70s. We just like to give it one more reading, we usually say you know, we'll text each other one of us is working. So what do you think and kind of look at the line, but, but we'd like to just kind of give it one more to see what happens before we make any

Scott Benner 52:46
decision before you turn a 73 into 120? For no reason. Right? Yeah. Yeah. Listen, that's the one of the great aspects of the Dexcom. It's just yeah, you know, it allows you not to panic about things. Once you see it once you can, like see the big picture. It's it's excellent. I mean, just really life changing.

Dan 53:10
It's made me think a lot about my dad. Because he never, he had a pump, I think the last couple years. But he didn't like it. And he never had a CGM. And so, who knows, you know, he used to eat these big bowls of Honey Bunches of Oats as favorite cereal. I see what elder eats something like that. You know, probably by the time he went and tested himself again. He was fine. But in between, who knows what was going on? Well, I'm

Scott Benner 53:41
gonna guess that he wasn't fine because he had a lot of a lot of issues. Yeah, so I'm gonna guess that his blood sugar was high most of the time and if he lost a leg and had heart damage, I mean, we'll never know I guess but you probably had a one season attends and a loved ones. It would it would it would make it would make

Dan 54:01
I would imagine. Yeah. Especially you know, as a kid, you know? Yeah. 20s, late teens and 20s

Scott Benner 54:09
was the how do you remember him? His disposition?

Dan 54:15
Always he was always very positive. Until Until the leg amputation and then it it really kind of slowed him down. A lot of the stuff that he liked to do and you know, like, he was sensitive to people seeing it at first, and then it just hurt his leg would hurt a lot.

Scott Benner 54:40
So you had neuropathy as well, I'd imagine. No, no. Huh. Okay. All right. That's interesting. Yeah. And the heart disease eventually.

Dan 54:52
Yeah. So he had a heart attack. We were out. out camping. Actually. My sister in law was with us. She's an ICU nurse. My dad was explaining what's going on. And she's like, sounds like you're having a heart attack. He's like, No, I'm fine. He went to bed. And then we ended up taking my wife to the ER because she had a reaction to some antibiotics she was on, never took my dad to the doctor when he was a woman. Because you know, life was in danger.

Scott Benner 55:23
You have an incredible sense of humor. Well, at one point, you said something like my dad's leg was amputated. And it stopped him from and you paused. And I thought in my mind, those voices in my head when playing soccer, and because I didn't know where you were gonna go, because you've, you've had such a, like, you're quietly very funny. And you have, and you have a great sense, a dark sense of humor, and I didn't know where you were going, like, I didn't know if you're going to be serious, or like, tell me what really happened to him. And it just You just laugh, like, my dad was having a heart attack. And we took my wife to the hospital.

Dan 56:01
It was kind of funny. In hindsight, but

Scott Benner 56:06
it didn't end up being didn't work out great for him. Yeah,

Dan 56:10
no, he had a quintuple bypass after that. And

Scott Benner 56:13
wow, how long did you live after the bypass?

Dan 56:16
I'm gonna say, about six or seven years,

Scott Benner 56:19
I was hoping it was a while so that your story seemed like it was okay for it to be funny. I was very worried you were gonna be like four months got it was four months after that. But yeah, cuz then I really would have, it would be hard to laugh about. You're not taking him to the hospital. But older people. Older people are like that, too. Like, it'll be alright. You know what I mean? Yeah,

Dan 56:37
he was he thought he was just fine. And the doctor said he had had multiple heart attacks, probably with the tests that they did. Wow. And then, yeah, he had a lot of circulatory circulatory problems. And, you know, that was probably from having a lot of high blood sugar. I would

Scott Benner 56:58
imagine his life. So is that a driving force for you now with your daughter? The memory your dad?

Dan 57:05
Yeah. 100% I, I think I listened to a podcast where you mentioned you had a friend, you know, that Mike? Yeah, that had kind of poor management. And it was a motivating factor for you.

Scott Benner 57:20
It helps me it helps me with the podcasts for sure. And, and I do think about him, in certain ways in relationship to my daughter, but I Mike's memory is stronger for me when I imagine the people listening to the podcast. Yeah, you know, because you, you describe it. I mean, listen, your dad was it was in the 50s. Like, you know, he's a kid, like, I get it, you know, but I mean, an amputation, you know, a quadruple bypass, you know, circulatory issues, those those are problems from high blood sugars, like prolonged high or fluctuating, but, you know, most I bet he wasn't fluctuating that much. And he was probably just high all the time. And yeah, and you also described a mother in law who didn't know how to use your own glucometer a type two. Yeah. And that's why I think, you know, keep having these conversations, you know, so that, you know, what happened to Mike can, and your dad and, you know, everybody else can can hopefully benefit someone, be a more positive influence and with like, if you hear this story and think like, oh, it's sad diabetes, it's gonna get me. You're missing my point, you know? Yeah.

Dan 58:35
Yeah. Yeah. Well, to answer your question better about my dad, I, I think that it taught me I saw him low, many times, growing up, and it was always fixable. And, you know, of course, it's dangerous and scary not to be taken lightly, but never caused any real problems once we've resolved that. But it was the high blood sugars that ended up you know, really ending his life.

Scott Benner 59:12
And they were the thing that he didn't really pay attention. He didn't really pay attention to as much

Dan 59:17
you know, he will feel uncomfortable.

Scott Benner 59:21
So then let me amend what I said just because the tools didn't exist not that your dad was like, Screw it. Like he was living the life that was was available to him.

Dan 59:32
Yeah, he was and he just wasn't, wasn't his thing. He didn't really know about carbs much or I don't think he really knew how things worked. He just did what the doctors told him.

Scott Benner 59:46
The doctors tell him to eat Honey Bunches of Oats because I'm pretty certain none of us should be eating Honey Bunches of Oats.

Dan 59:53
I don't think they told them that. That was the best food

Scott Benner 59:58
Oh my gosh. Wow. So, are we are we covering everything the way you were hoping? Or is there? Is there something I'm not getting to?

Dan 1:00:06
Um No, I think I think we covered it all.

Scott Benner 1:00:16
We're doing okay. Yeah, yeah, I'm not kicking you off. I just wanted to make sure I wasn't missing anything. That's all. Because, you know, like, there's stuff that you've thought of since you I mean, I'm assuming you signed up for this, like six months ago.

Dan 1:00:29
Yeah. Yeah. Like, I'm gonna email Scott. See? So then, you know, I've been nervous about it for the last six months.

Scott Benner 1:00:38
Have you really?

Dan 1:00:40
No, not really real as well. today? This morning. I wasn't like, oh, no, I've got to do it.

Scott Benner 1:00:45
Are you nervous now? No, I'm

Dan 1:00:47
fine. Now. Okay. Yeah. Okay.

Scott Benner 1:00:49
But this morning? I wonder how often that happens. Because, you know, I mentioned on here sometimes, but I part of my screening process is that there's no screening process. So you have to want to be here. When I sit down to record to you with you. Get me like you get, I think two emails that remind you, yeah, and it's a six month wait. I mean, imagine like in June that you'd be like, I'm going to be on a podcast, and then in December, you get an email, like four days before, whatever. And it's like, hey, don't forget, you're gonna be on that podcast. I don't call you and be like, Hey, don't mess this up. I'm like, there's the link, you'll be there if you want to be. And everybody shows up like it. I'd say twice a year, there's no one there. And they usually just need to reschedule. People don't bail on me. But yeah, because of that I get I get well thought out and people who who have a real desire to tell a story, you know?

Dan 1:01:43
Yeah, that's, that's really good that I would assume that more people bail on you.

Scott Benner 1:01:49
But when that starts happening down, I'll get panicky, don't you worry.

Dan 1:01:54
I think that it's, it's kind of part of the community that, like, when Eleanor was diagnosed, there was we had all the vaccine stuff going on, where everybody, you know, hated each other, based on your opinion of that, and all the political stuff going on. And the one good thing that I kind of got out of it was the people in this community are so supportive of each other. Nobody, nobody cares about that stuff. Once you start talking about type one diabetes, and it's really kind of refreshing.

Scott Benner 1:02:30
I agree. It's a wonderful community. It really is. And, and a large part of why people are here, like, I'm sure if I was running a podcast about, you know, animal husbandry, people would bail more frequently. They'd be like, why wait six months to record that animal husbandry Podcast?

Dan 1:02:48
I'm gonna start one, I'm gonna see

Scott Benner 1:02:50
the end. You know what's funny? I'm about 86%. Sure, I know what animal husbandry is, it just sounded like funny words in my head when I thought of something.

Dan 1:03:01
You probably it's just taking care of animals, right? Is it?

Scott Benner 1:03:04
It's not about inseminate them? It's that I hope it's not that was what I started panicking and worrying about by saying something creepy.

Dan 1:03:12
husbandry is just like, you know, at the at the zoo. The zoo keeper practices Hold

Scott Benner 1:03:19
on a second. husbandry and animal husbandry is a branch of agriculture concerned with animals that are raised for meat, fiber, milk, or other products. It includes day to day care, selective breeding and raising of livestock. There we go. Anyway, if I had one of those podcasts, I'd expect people doing I'm not waiting six months to get on this damn thing. I don't know we throw the feed in the bucket. What a bad podcast that would probably be

Dan 1:03:48
very interesting, at the end

Scott Benner 1:03:49
of this whole thing, then I'll torture you guys. Like whenever I decide I'm going to be done. I'm gonna torture you by doing an entire year of interviews that have nothing to do with diabetes and are about the craziest, most bizarre thing, bizarre things that I don't understand. I will spend the last year of my life trying to understand all like, I'll find somebody to talk about animal husbandry, they'll come on and walk me through the whole thing. Seriously,

Dan 1:04:13
what if you did that? And then that got really popular even more?

Scott Benner 1:04:18
Well, that would go to my head down. I just want to tell you one thing, God.

Dan 1:04:27
One thing I just for whatever reason thought of that I think some people might enjoy hearing about is so I've been seeing a lot of stuff about airports on on the different Facebook pages and you know, going through the security and with all your equipment and stuff like that. And so with my dad with his prosthetic leg, they had no idea what to do. It was different every time and I remember one time the most awkward one. They made him take his leg off. Put it through the scanner, and then hop through the metal detector on one foot, and then put his leg back on the other

Scott Benner 1:05:07
one airport was this call them out?

Dan 1:05:10
I don't remember it might have been might have been in Portland.

Scott Benner 1:05:14
Why are you guys flying so much?

Dan 1:05:19
You know, it's an entire lifetime.

Scott Benner 1:05:21
It's like how much of your yearly income goes to airfare by the way? I can't believe I'm saying this. This podcast episode is definitely gonna be called animal husbandry. All right, nice. Because I want people to listen the whole time and think, nothing to do with that.

Dan 1:05:41
That's the funniest thing about this podcast is when I'm looking for one I didn't like I didn't go in order on them, but you really can't get anything from the title.

Scott Benner 1:05:51
I'm making you listen, damn, I don't need you. I don't need you disregarding an episode because you see a word you're not sure of.

Dan 1:05:59
That sounds interesting. I think the first one that I listened to. My wife sent me a picture that she got off of the Facebook page of like, the first ones to listen to, I guess. And the first one that I listened to was texting diabetes. And it was right before Eleanor started kindergarten. So her first like public school thing, and we were just freshly diagnosed. And I'm gonna have to do it different this year, because I was like, I was like hot walking. School telling them what they're gonna do.

Scott Benner 1:06:33
Yeah, I got you all charged up then. And then you went in there.

Dan 1:06:37
They're all fired up.

Scott Benner 1:06:40
There's an episode of the podcast called The frozen urine part of diabetes. I can't for the life of me remember why that is? Was to that one. The other day? butthole adjacent came out?

Dan 1:06:55
Oh, yeah. I saw you. I saw on the Facebook page that you asked how people feel about

Scott Benner 1:07:02
that. Yeah, I actually was concerned. You know, I was like, let me just see, by the way, overwhelmingly, people did not care. And yeah, it's funny because I'm, you know, I mean, if you listen enough, you probably get my sensibility. Like, I might go, I'm going to listen, it's an episode about a girl who got a fissure or something like that. What did they call those? You would think I know, because I recorded the opposite. Sounds right. Yeah. harassed, exploded. Okay. And it was, it was prior to her diagnosis. And so it's a big part of her diagnosis story. She had this pain, she went to a doctor, etc, etc. And the, you know, the damage, you know, where she had the injury, you know, is it's an injury of her skin, right? It's, it was between her. It was it was it was entertained. So, I was I was, I was waiting for you to say, yeah, so I couldn't say like, you know, blah, blah, blah, pain exploded. And then I was like, that doesn't work, you know. So I was like, Well, where is it? I was adjacent to her butthole. I was like, I'll call it butthole adjacent, and I'm typing that out. And there is no voice in my head that says, you should probably not do that. But I'm just like, that makes sense to me. Right? And then I set up the post. A couple hours later, I thought, maybe I ought to just throw a poll up on the Facebook page. Just real quick to check myself.

Dan 1:08:29
Yeah, when I started, most people are okay, I don't care.

Scott Benner 1:08:31
overwhelmingly people were okay with butthole Jason. And now, five years from now someone's going to trip across that and be like, what does that mean? What does that have to do with diabetes? You know, yeah, I'm looking here. I typed in but beauty to bring up you know, I got butthole adjacent Rocky and Bullwinkle, Bullwinkle, this Jenny burnout. Navigating bureaucracies with type one defining diabetes bumping nudge under the shade bus with MADI bushwhacking with Justin like I'm starting to wonder like what would happen like just say a word in any short word god

Dan 1:09:06
OH. husbandry

Scott Benner 1:09:10
bastard What are you doing? So I will type in don't have

Dan 1:09:15
anything now about how about how I'm trying to think I was gonna say food but that

Scott Benner 1:09:21
probably has everything that funny will have something Yeah, yeah. co parenting So I typed in food co parenting through divorce came up. Printing a one sees the word food must be in the description somewhere mature onset of the here's one mature onset of young love. Oh, what does that mean? We'll see. But I know Dan. Right. This person had Modi i think so mature onset of Baba bah is Modi. And she met her husband when they were really young. And to me those were the two keys of the story. And so but what would I need like You know, what would I do? Like what title? Should it be? You know, Jill has Modi and she got married young. If you read that, you'd be like, What the? Listen. Yeah, yeah, yeah. So yep. Trust me, I know what I'm doing. Am I doing Oh, am I being tested here, Dan?

Dan 1:10:17
Successful. So keep doing it.

Scott Benner 1:10:18
Yeah. Against all odds. And I seriously mean, if you knew me when I was younger, you'd be like, really worked out anything for him. That's interesting. Pull it together.

Dan 1:10:32
I don't know how you. You are very good at just letting that Facebook page go. Most of the time, I've only seen a couple things where you get mad, because someone's trying to sell something which I get because you're not doing this, you know, you could probably make a lot more money than you are doing. someone stealing your stuff to try to sell things that would kind of piss me off.

Scott Benner 1:10:55
I don't I don't like people taking advantage of other people. So yeah, if I come in there, and I say, look, here's a link for G voc hypo pan. If you click on it, it helps the podcast, you know, that's aboveboard? No problem. If somebody comes up and says, I found this thing that I use, it's really helpful, and I want to share it with people. That's great. But you can see the sneaky, you know, affiliate links, where they try to act like Oh, my God, this thing really helped me you should check it out. Or, you know, T shirts, scammers, that's really the biggest problem is that I don't want people to get scammed. And it happens constantly look at this shirt, and then people like, can you make me one? And then before you know what, everybody send him money to people, I'm like, stop, stop. No, no, no. Yeah, I mean, the truth is that, that that Facebook page, I think, right now is 20. I it's weird when I say it in the podcast, because then I listened back six months later, there's so many more, but now there's like 20 26,000 people in there. And there are people who are helping themselves. They're helping each other. They're sharing information. They're being supportive, they're creating a community, they're, they're, you know, they're helping people with questions. And they need to feel safe there, they shouldn't have to think that you're trying to steal 20 bucks from them. And Facebook is, you know, you have to protect that. So it's not. And then the other thing is, it's not a marketplace. I can't just let people come in there and pimp their businesses like crazy because those people are 26,000 people trying to help each other. But from a cynical perspective, they're also a bloc of people who are primed to buy certain things. And that's not that's not right, either, you know, and I don't get mad as much as I'm just like, ah, like, can you just leave me alone, I don't want to do this. But, but to your original point about the Facebook page, it works really well. Because it runs off my general vibe, which is speaking adult, just just stop it. I mean, like don't Don't, don't be looking to be upset and don't pick on people and don't be crappy to people just just be a be a human being and talk about your diabetes and people follow my lead do gratefully because it's a that Facebook pages is valuable to people diabetes, this podcast is I believe,

Dan 1:13:14
yeah, yeah, I don't really ever comment. Well, I haven't made my own Facebook page for posts for probably five years. My wife just does it and tagged me in it. So I don't ever comment on there. But I read people's stuff all the time. And I'm glad that other people comment because it really helps you learn all kinds of different tricks. And you know, it's such an individualized thing. type one diabetes is not the same for anybody and so I just getting all these ideas from so many different people. It's pretty amazing. It

Scott Benner 1:13:47
is it's um oh, it's one of the most amazing things I've ever seen actually people helping people like I sound goofy sang it, but you're from the you're from the northwest. You don't care if I sound Yeah, right, right. Yeah. So yeah, we're help each other man. Let's go in the woods. What's that a mushroom? Let's eat it. I know. I haven't figured it out completely. But I'm getting there. And so fish like how often have you stare at those fish? That you just like if you find them relaxing? Still? Are they still just work?

Dan 1:14:16
Oh, yeah. So no. Fish Tanks will bring your blood pressure down. Study that they've done. But yeah, definitely raises mine. I can't go to like a public aquarium without trying to see the problems. And then usually if I find some problems, I feel better. I'm like, Oh, they have

Scott Benner 1:14:34
issues too. You start throwing business cards around or what do you do?

Dan 1:14:39
Yeah, I'll fix that for you.

Scott Benner 1:14:42
Anything about your job help you balance say a hot tub pH? Does it lend itself to other parts of your life at all?

Dan 1:14:49
That is an interesting question, because when I was in college, I worked at a pet store that sold fish and reptiles and hot tubs half Hi. So my boss's idea was that it's more or less the same thing. It's a thing full of what? You know.

Scott Benner 1:15:10
Let's just go for simpler distributors similar skills. How many people do you know who believe in Sasquatch?

Dan 1:15:18
I think just my older daughter.

Scott Benner 1:15:20
Okay. Well, she's 12 I'm okay with that.

Dan 1:15:22
Yeah. Yeah. So it's funny. I just looked at the follow app, you know, saying I was nervous to get on here. My blood sugar. I haven't. I haven't had breakfast today. My blood sugar is 158. Wow. And I just had my a one C done a couple of weeks ago. And it was like 5.2. So I think I'm okay.

Scott Benner 1:15:44
Artists, blood sugar is 94 at the moment. So she's doing better than your pancreas.

Dan 1:15:51
It started going up right around 1015.

Scott Benner 1:15:54
I hear it sometimes people like get on and they're talking for 10 minutes, I hear beep beep and I'm like, You're right. Like, yeah, my blood sugar is just going up. I don't know why I'm like, You're nervous. I'm famous. And then you know, which I'm Dan, you know, right. I don't know. I don't think that kind of a big deal. So who? To you?

Dan 1:16:11
Yeah, to the people that know about you? Yeah,

Scott Benner 1:16:13
it's an oddity, really, I'm gonna go back downstairs, when we're done here, and my wife will make sure that I know I'm not a big deal. We'll take care of take care of the whole thing right now. I I wanted to get back to though just the idea of community for people super important. We don't talk about enough, it sounds kind of hokey, when you say it, it doesn't need to mean that you're like at diabetes camp for a week, it doesn't need to be it doesn't need to mean that you ever post on that Facebook page. It can just be the practice of watching the conversations, I think is incredibly valuable. And and just being around people who are are in a shared experience is was very comforting. Yeah. It's weird that I'm the one that facilitates it, but maybe not, you know, I was thinking it's funny. It's funny, you bring this up, I saw an email today from a person that I know who is the community manager, right. So it's a real job, it's 2022, this person makes a real honest living owns a home. And they're they manage a community online. That community that they manage has a small fraction of the members that mine does, it does not run well. And I've never thought of myself as a community manager in my life. And I realized when I was looking at it, it was all kind of like coalescing in my head, I thought, Oh, I am a community manager. I just do it differently than people do it. I don't put rules on people constraints. I mean, the basically, the rule of the Facebook page is be nice. That's yeah, that's it really, you know, I don't know, once a while people try to argue about politics, there's no politics. He just say no politics, that's the end. And when people say things that are kind of, you know, I was gonna say off color, but it's not true. I think what happens is, I think what happens most of the time is that people just don't communicate the way they want to sometimes they have an intention in their head but doesn't come out, right, or they don't think about how it reads. And there was a thing this morning, where I just I said to the person, hey, I don't think you're I don't think you meant this this way. Like, could you look at it again, please. And I didn't say it to them privately, or send them a message or I wrote under their comment I said, I don't believe that you, you know, I hear what you're saying. I have a ton of respect for the situation you've been through. Can you please look at this again, to see how the original poster might read it. And then the person came back and said, Oh, I didn't mean it that way. Like it, it was very, like, cordial. It again, to me, it's the you got to you can't walk around wanting to be upset. You know, you got to give people the benefit of the doubt. And, and assume that they mean good things, too. And then a lot of times you'll find out they did or you'll catch somebody in a bad moment. And they'll they'll adjust themselves. And the ones who don't are crazy. So what are we doing? We're gonna argue with them. You don't I mean?

Dan 1:19:07
Yeah, yeah, well, I write and delete emails to my clients all the time because like, caught me in a bad mood and I'm gonna I'm gonna wait to send that

Scott Benner 1:19:20
let me just take a second here and think this through i I said to somebody recently might have been on the podcast, I don't know, I feel bad if I'm repeating myself, but the podcast and the Facebook page and in general, interacting with people with diabetes for so long. It's made me a better communicator. But I I know how to talk to people in a way that I mean, that is still unique to me but sincere and does not. And takes into account how people might be feeling in ways that I don't know so you don't. I'm not a person who uses the word triggered really, but they're, you know, So you don't trigger people. So you don't get them. Yeah, you know, you don't put them in a in a disadvantageous situation the first time you talk to them, and that's how you, you breed conversations. So,

Dan 1:20:11
yep. Yeah, I agree that you have that unique skill that it's hard to do. It's hard to get people to tell you, especially things like this that are can be so personal.

Scott Benner 1:20:25
Without, well, then your barriers. You're nice to call it a skill, but it my whole life, people just tell me stuff. I don't know why it is natural. Yeah. My wife's like, when people tell you things they shouldn't tell you. And I'm like, I know. It's been happening forever. I have no idea. So probably just my deep voice then makes everybody comfortable and a little woozy. And then they're like, Yeah, my wife wants to put her hand inside of a cow.

Dan 1:20:50
I just, I just started a podcast this morning. Sounds like Alright, I'm gonna wait, just see how this goes. And it was all you the All I got to was you just talking about how great your voice was?

Scott Benner 1:21:03
Oh, you started one of my episodes. I thought you were like, This is the end. Now. I'm going to pimp my new podcast.

Dan 1:21:09
It was yours. It was the like divorce attorney. Oh,

Scott Benner 1:21:13
yeah. Great episode with a divorce attorney who is also the parent of a type one, she comes on gives great, great conversation about how to manage that situation. So I do the edit on it. You know, I know we recorded it a couple of months ago, I she wrote a great blog post for it that's on juicebox podcast.com. That's a companion like a real step by step how to like great advice. Anyway, I edited it. And it was ready. So the audio gets chopped up into blocks. And it's waiting for me to do the open like the Hello friends like that part. And you know, this episode of The Juicebox Podcast, and then I put the ads the middle, and I do the outro like the thank blah, blah, blah. And that happens later. And a lot of times that happens later at night. So I sat down to do that one. And I hadn't recorded in 12 hours, like I hadn't had these headphones on, you know, since noon. And I put them on. It's midnight. I'm probably a little dry and a little tired. And I go Hello friends. And my voice was so deep. It frightened me. And then I got okay, because I'm hearing it my ears like you and I are the same. You and I are the same audio level in my ears. So it keeps me from talking over you because I hear you on my level. Right? And so when I sit down to do the Edit, and I just my voice was booming, and then I got intoxicated, I was like oh my god, like it wasn't stopping. I was like, my voice is so deep right now. Anyway, that's the end if I had the opportunity, or the idea or the knowledge of how to pretend to be a different person, I guess I would but this is really just sort of me. So Oh, my God, my voice.

Dan 1:22:56
I think it's likeable for most people.

Scott Benner 1:22:59
Why are you listening to it? Dan, do you think you're getting divorced?

Dan 1:23:02
Yeah, that's what I actually thought about that afterwards, it was I wanted to find one that had the normal like intro that wasn't like a famous person or something like that just to sort of get my bearings. And then after I clicked on it, I was like if this like, somehow shows up in my history, and my wife's listening to that one.

Scott Benner 1:23:24
So don't think I didn't worry about that when I made it. Because I thought, are people going to listen to this? Like like it because it's great. I mean, she's terrific, like no life. Like, really, it's a great interview. You know, she talks about her, her, you know, her professional ideas around the topic, we talk a little bit about her, you know, her daughter as type one in the regular life. It's it's a nice mix, like you would expect. But when I put it up, I thought I wonder if people will just not want this in their history. Because it says co parenting through divorce. And if you're married, and that's in your history, somebody might not think that's great. And I just wonder what will happen. So I'm going to look right now to see if stats wise, it's different from the episode that went up right before it. Let's see. First day stats, I'm not gonna say the numbers out loud because you people don't get to know that. Yeah, but let me look at the next one. This one? Yeah, it's down a little bit. It's down. It's down a little bit over the one that came out just before it, which was my expectation. And to your point earlier about, you know, that's still a great conversation. If you're not thinking of getting divorced, still listen to it. Talks about communication and mediation and how people talk to each other and problems that arise in relationships and all this stuff but you write divorce on it, then everybody's like I'm not getting divorces and they won't listen to it.

Dan 1:24:55
Well, now I can listen to it and then if my wife you know this suspicious about I'll be like, just wait, you know, four or five months.

Scott Benner 1:25:06
Meanwhile, review. Your wife's listen to her three times already. She's like, Yeah, how to books she's making a man or guy was serious about these fish tanks. I didn't realize I gotta go. Oh my gosh. All right. Well, then you've been terrific. I really appreciate you doing this.

Dan 1:25:25
Yeah, thank you. I enjoyed talking to you. And, you know, it goes without saying, if you're just saying that, and it's terrible. I will not have never. You'd never use this one.

Scott Benner 1:25:38
You listen to the show right there? I do. I don't I don't throw away interviews ever.

Dan 1:25:43
I didn't. I didn't think so. Yeah, no, I

Scott Benner 1:25:46
mean, so I've been a handful of them that have gone wrong for reasons that have nothing to do with the person giving it. And I've put up episodes that I wasn't personally attached to. And I still hear back from people about how much they love them. It's not just about me, or one person or one aesthetic. Like you're right for somebody, you know? Yeah.

Dan 1:26:07
Yeah. That's kind of why I wanted to do it. Good.

Scott Benner 1:26:10
I really appreciate you taking the time. I sincerely do.

Dan 1:26:14
Alright, yeah. I appreciate you. And so well, how long how does it work? You just decide, like, how long does it how does what work?

Scott Benner 1:26:23
We're done. How do I? How do you ask me a question?

Dan 1:26:27
How do I know? How does one know when there? Interview gets?

Scott Benner 1:26:33
Oh? Well, then the machine takes care of it. We have a large intricate staff over here. I don't know Damn, it goes up. It goes up in your podcast player and you go animal husbandry Holy crap. All of that. What an idiot. That guy is. I have no idea why that podcast is listened to by anybody. No, I don't. I'm not going to tell you just gonna Yeah,

Dan 1:26:55
okay. Just kind of watch it. And then

Scott Benner 1:26:57
six months is six months is about the measuring stick. Okay, so pretty close six months and beyond. See how I've trained you six months to be on six months to go on? Record. So it's a year from when you emailed me? And you're like, Oh, that's not bad.

Dan 1:27:16
I think that is it. I already

Scott Benner 1:27:17
waited six months for this. Like I'm teaching people patience. I'm really I'm doing a public service. You know, I really happy yeah. All right. Yeah. Hold on one second. Okay.

Did I not tell you Dan was terrific. I was right. Thank you, Dan. And thank you, Omni pod makers of the Omni pod five, and the Omni pod dash Omni pod.com forward slash juice box. What are you waiting for? Speaking of waiting, how long have we been waiting for the Dexcom G seven and now it's here, Dex comm.com forward slash juice box. Go go go go. I want to thank you for listening and for sharing the show with other people. And for all the kind things that you do for each other. I'll remind you that I'll be back very soon with another episode. And that you should check out the private Facebook group Juicebox Podcast type one diabetes. Alright, I'm out of here. Don't forget to use my links

#858 Run Jenna, Run

Jenna has type 1 diabetes and some good stories!

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
Hello friends, and welcome to episode 858 of the Juicebox Podcast.

On today's show I'm gonna be speaking with Jenna she was diagnosed with type one diabetes as an adult, and has run in a number of marathons with type one. We're going to be talking about that and much more on this episode of The Juicebox Podcast. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice. I just forgot the words that's crazy. Medical or otherwise. Wow. While you're listening today, what how do I do this? While you're listening today, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. Or becoming bold with insulin. Wow, I have said that so many times. I don't think I'm thinking about it while I'm doing it. See when the exchange.org forward slash juice box if you're from the US and have type one or are the caregiver of a type one, please take the survey AT T one D exchange.org. Forward slash juicebox. Thank you. I'm just going to leave all that in so you can enjoy my confusion

this episode of The Juicebox Podcast is sponsored by touched by type one visit touched by type one online at touched by type one.org. And also find them on Instagram and Facebook. There are beautiful organization doing wonderful things for people with type one diabetes, and they would love for you to check them out. Touched by type one.org. The podcast is also sponsored today by us med get your diabetes supplies the same way my daughter does from us med us med.com forward slash juice box or call 888-721-1514 Just get your free benefits check. And you're on your way with us med actually us med called here tonight. It was a personal call. They were looking for Arden because they were like hey, hello, this is us men. And I said hello us. How are you? And they're like fine. And then they said would Arden like the Dexcom g7. And I said you know it? And they said all right. And now that's done. Us med.com forward slash juicebox links to all the sponsors are in the shownotes of the audio app you're listening in or at juicebox podcast.com.

Jenna 2:48
Hi, I'm Jenna. And I've had type one diabetes for three years. How old are you? I'm 35. So I was diagnosed when I was 32. Are you married? No,

Scott Benner 3:00
no. Had you when you were 32? No, I asked the question awkwardly. But were you with anybody when you were diagnosed? I guess is what I was trying to

Jenna 3:09
get at. I am now but I was not back then not then

Scott Benner 3:13
am now got it. Okay. Very expected or unexpected.

Jenna 3:20
It was completely unexpected. So I've no family history kind of came out of nowhere. I do work in health care. So I actually did end up recognizing my own symptoms, but I was pretty sick. And it took a little while for me to get there. So I guess I could talk about that a little bit. If you want me to

Scott Benner 3:35
look at your producing Yeah, no, no, I was gonna ask, what did you notice? And why did it take you time to, I guess come to grips with it.

Jenna 3:46
So I'm a really big runner. And I had run 12 marathons in my life up to that point, and I was training really hard to try to qualify for Boston. I live in Oklahoma, it's extremely hot in the summer here. So I've been doing a lot of running in the heat. So I was drinking a ton of water, you know, all the usual symptoms going to the bathroom all the time, losing weight, and I was thinking man, this marathon training is really killing me and it's working really well for weight loss this time. But, you know, eventually I started thinking to myself, this just isn't right. So I checked my blood sugar at work and it was too high for the glucometer to read. And I was in denial. So I said to my friend, I think our glucometer is broken. Can you check your blood sugar and she was drinking a coke and hers was like 102 So I knew at that point,

Scott Benner 4:27
I think your blood sugar is broken. We gotta get a third person over here to try.

Jenna 4:32
I know that's how I felt that's what I was hoping for. You know, denial.

Scott Benner 4:35
Can I ask you about those 60 seconds when you say to your friend, hey, check your blood sugar. This glucometer is not working. Are you? Are you honestly thinking that's the case? Or are you thinking oh wow, this is my last chance to prove I don't have diabetes.

Jenna 4:51
That's exactly what it was because I had been thinking for days that I should check my blood sugar at work. But it was like everyday it was like one more day if I don't if I can put this aside from One more day not think about it. So I had that was a Tuesday, I worked that weekend before. So Saturday, Sunday, Monday, everyday told myself, you're gonna check your blood sugar today. And then finally, and finally on Tuesday decided, You know what, I have to just do this. So yeah, if I lost about 20 pounds, so I knew that you know, something was pretty wrong.

Scott Benner 5:18
What would you do professionally? If somebody did what you did? What would you say to them?

Jenna 5:24
Oh, I mean, I guess I'll say now that I can. So I'm a PA. Like I said, I work in healthcare. And I understand denial is a powerful tool. And I guess I can I'm more empathetic towards patients in that regard now, because, you know, I would think to somebody to one of my co workers, how did you not notice this? You know, but really, I think I had I just didn't want to come to terms with it.

Scott Benner 5:44
Yeah, no, I understand it. I'm glad it gave you some perspective that you can use with other people. So you're a physician's assistant. Yes, I am. That's a cool job. You work in a hospital system or in a just like a physician's office.

Jenna 6:00
I work in a hospital system. So I do a little bit of both. I do hospital side and clinic, which is nice. Nice.

Unknown Speaker 6:06
How long have you been doing that?

Jenna 6:07
10 years now?

Scott Benner 6:09
Wow. You say Oklahoma earlier? Yes. It's really hot there. How come you people can't drive in the snow?

Jenna 6:16
Oh, I have no idea. I used to actually live in Philadelphia and I couldn't drive in the snow there. But you didn't really have to because, you know, they plow the streets and salt. But here, they just don't do anything to the road. So like a half inch of ice shuts us down.

Scott Benner 6:30
I gave a talk in Oklahoma once. And it got about half the turnout as tickets sold. Because there was what I would generally call a dusting of snow on the ground. Three hours before the thing began. And it was cleaned by the time it happened and people were just we don't go out in this and like in white. Just couldn't understand.

Jenna 6:50
Oh, it shuts down our states. That's for sure.

Scott Benner 6:53
Very interesting. Okay. So how did you make it from Philadelphia to Oklahoma?

Jenna 6:57
So because you're Oh, I wish no. So I'm originally from the Philadelphia area. But my dad got transferred to Oklahoma when I was in like second grade that I went to PA school back in Philly. And then I

Scott Benner 7:09
moved back here. So I'm just kind of been back and forth. So military bounced around.

Jenna 7:14
No, my dad actually is not military. But I get asked that a lot.

Scott Benner 7:17
Yeah. Oh, just a job change. Oh, that's interesting. Yeah. upside to Oklahoma over Philadelphia, and vice versa.

Jenna 7:25
I'd say the people in Oklahoma are the friendliest ever. So definitely. That's that wins for Oklahoma. Philadelphia is nice, because it's close, you know, to a lot of places. So you get a weekend off work in our long weekend, you can do a lot of traveling and Oklahoma pretty much up to fly anywhere. So take the worst downside of Oklahoma

Scott Benner 7:44
take the first three days to get out of Oklahoma. Right. Exactly. And all of a sudden, I gotta go back to work. So okay, so you're so this happens at the hospital or at work where you test your blood sugar. You and your friend I imagine look at each other your coworker like oh, wow, you have diabetes. And then what do you do?

Jenna 8:04
So the I broke down. So you know, I was really upset. I also didn't realize how much different management was from what I thought like, I didn't know CGM existed or anything. So I was just like, I was supposed to run this marathon. 11 days later, they had been working super hard for and I was like, There's no way this is going to happen. I was just I started crying at work, basically. So the physician I work with actually called it endocrine department and got me an appointment the next day. So I'm extremely lucky to have had that connection.

Scott Benner 8:33
Yeah. Yeah, no kidding. So the the running was the first feeling of loss. You had it immediately.

Jenna 8:42
Yeah, I guess, you know, managing type one diabetes, like I said, is a lot different than I thought it was. I just immediately was like, thinking of this life, you know, surrounded by finger sticks. And just, you know, I didn't know about the modern technology at that point in time, which is crazy to think about now.

Scott Benner 9:02
Yeah, no, I mean, did you have much connection to diabetes in your practice?

Jenna 9:07
We see a ton of type two, but they're

Scott Benner 9:09
not really wearing CGM. CIAT at this point with any great frequency.

Jenna 9:13
You know, it's interesting that either hadn't been or I wasn't just wasn't as aware of them. Because now I, we raise a very common among my type two patients at this point.

Scott Benner 9:23
That's interesting. It's and it hasn't been that long. So maybe you have a little both maybe maybe it's coming on and at the same time, you weren't really looking for it. That's what I think interesting. Okay. Why do people run the game for any reason whatsoever? I don't understand at all like so. Is it uh, are you other voices in your head? You're trying to keep quiet? Is it about setting a goal and getting to it like what makes you want to just go out there and pound away like that?

Jenna 9:52
I guess I am a pretty goal oriented person, but there's actually a really strong running community in Oklahoma City. So I need a little group to run Before work Tuesday through Friday, so it's kind of nice little social hour before work. And I mean a group to do long runs on Sundays. So it is a pretty social sport.

Scott Benner 10:11
Yeah, you're not answering my question agenda. Are these a group text these people? Or are they people who like to run? What is it? Man, I

Jenna 10:19
guess we just like to run Oh, we want to

Scott Benner 10:21
say I have to just, this person is never going to hear this. So it's fine. I'm tangentially related, not related. I have I've seen a person more than once or twice in my life, let's just say, who runs to the point where their body appears to be a skeleton wrapped in small muscles. And they don't seem like happy people to me.

Jenna 10:46
Oh, well, I don't run that much. I don't think you'd even look at me and probably peg me as a runner. I just look like an average person. Okay.

Scott Benner 10:53
And not to lump everybody into one category, which is what I just did, and not what I mean. But But this specific person I'm thinking of like, in my mind, when I look at them, I think something's wrong. And this is the way they're dealing with it. It doesn't look any different than overeating to me. Is that makes sense?

Jenna 11:12
Yeah, I know the kind of people you're talking about. But I wouldn't put myself in that category. I just, I just like to run I track and cross country as a kid and I just kept going,

Scott Benner 11:22
you get that? Like, what do they call that runner's high?

Jenna 11:26
You know, maybe sometimes I don't, I don't think on a daily basis or anything

Scott Benner 11:31
kidding. It's so so goal oriented. So we're getting through this. My son just explained this to me the other day, he said, I don't care what I'm doing. I just want to set a goal achieve the goal and reset a goal. It's very, you know, is that sort of it then?

Jenna 11:45
I think so. Yeah, I have that goal to qualify for Boston. And I will tell you, I ran that, that marathon 11 days later, and I did. Did you realize, wait a minute. I did.

Scott Benner 11:53
Yeah. You just like, did you know what you were doing it all with your diabetes.

Jenna 11:58
I did a ton of reading and that 11 day period. So they started me, you know, on to Jao and homologue. So I just started doing a bunch of reading cut back my to Jaya the night before. So I was taking nighttime. And I got through that marathon pretty well. Actually, I had a I use a Dexcom now but I believe re sample that the Office gave me to use for it. And so I just scanned it every half mile and carried a bunch of carbs and made it to the end. So did you

Scott Benner 12:25
cheat and fly to Boston as you will run there?

Jenna 12:29
I flew. So I could have run quicker.

Scott Benner 12:35
To quick, it would have been a quick jump from Philly about 45 minutes into Boston. But

Jenna 12:38
that's true. What do you I chose to go from Oklahoma?

Scott Benner 12:41
Do you go in like days prior set yourself up in a hotel? How does that work?

Jenna 12:48
For Boston, I went two days early. So yeah, a lot of times, we'll go two days early. So you can go to the expo and pick up your packet and everything and then you know, then run the marathon and I usually I'll stay a day and check out the town if I go to an out of town marathon don't fly back.

Scott Benner 13:02
Interesting. Okay. And you have and you have energy the next day.

Jenna 13:06
Not Not very much. Sometimes my friend and I ran Chicago a few years ago made all these plans and sightseeing that did not happen at all.

Scott Benner 13:16
I had an extended catch with call the other day and I was like that tomorrow we're gonna need to take a break. So I'm saying get on a plane. Like if I got on a plane and flew from Oklahoma to Boston, and spent a couple of days I might need those days to recoup from maybe this says more about me than it does. So how do you going back to that first runt? Well, let me ask this how many marathons had you run prior to your diabetes? Do

Jenna 13:44
you think I ran 12 prior Wow. Okay, and then

Scott Benner 13:51
I'm assuming there's you know, a way you get ready whether you have diabetes or not, but how does it differ from before diet type one and after type one?

Jenna 14:00
Oh, it's a lot different for now. I think the hardest thing for me with type one has been managing my running schedule because you know, I used to carb load the days before I don't really do that because I find that just makes my blood sugar high and that's more stressful for me so typically most runs I run fasting so I find that I drop much less if I do that so marathon day I don't I changed my plan that day, which they usually say don't change what you do on marathon day but but diabetes I think it works better to do that. And then I can only fuel during the race depending on what my blood sugar's doing like before I diabetes every four miles I'd take like carbs in but now if my blood sugar is high, then I don't I just lie to try to run it down and put it off the more miles

Scott Benner 14:42
I see. So when you Okay, so you're running down do you wear Dexcom? Are you slowly right?

Jenna 14:47
Now I have a Dexcom now,

Scott Benner 14:49
are you looking at it on a watch when you're running? Or how do you do that?

Jenna 14:55
You I have an Apple Watch so I look at my Apple watch. I often just run with my phone One of my hand like, normal days during the week, just because you know, the Apple Watch, you got to tap on the screen sometimes to get the number to come up correctly. So sometimes it's just easier to hold my phone, I have it like a little widget on my phone. So what one of those two ways I love that widget by the way, me too. It makes life so much easier

Scott Benner 15:17
on mine as well. And Arden has it on hers for Dexcom. And I just looked at it now because it's that easy. I'm just imagining you running along like tapping on that watch and then running into a pole or something. I know right? Clunk. At least my blood sugar is good. I like you're

Jenna 15:36
waiting for help. My face might not be.

Scott Benner 15:39
So what kind of supplies do you run with now? Is it like? I mean, you said like carbs. But what does that mean?

Jenna 15:46
So I used to use those like little goos. I don't know if you're familiar with them. Like, run it like runners and triathletes use them a lot, but only. So they're just like basically like a honey consistency. But they have 23 carbs in them in spike my blood sugar like crazy. So during the week, normally I just use fruit snacks, because there's about four carbs per fruit snack. So if I see I'm trending down, I'll just pop a fruit snack or two. Because if you use the use any of the pie when you're done and some type a I like to have tight control, so I don't want to end my runs with high blood sugars.

Scott Benner 16:18
What's that mean? What's your range that you're shooting for?

Jenna 16:22
I pretty much try to keep my blood sugar between 7140 As much as I can.

Scott Benner 16:27
I like that. Do you listen to this podcast? Right?

Jenna 16:29
I do. Yes.

Scott Benner 16:31
That's when did you find it?

Jenna 16:33
I found it probably about three weeks after I was diagnosed. I was just, I was trying to learn as much as I could. And I started like doing Google searches and everything on your podcast. And I've listened to probably almost every episode now.

Scott Benner 16:47
I was just saying I jump around. But I don't care how you get it done. And I was just saying the other day I have to find like a digital award to give people like when they've listened to every episode, they should get something. I don't know how to handle I don't know what you would do with that. Maybe an NF T? Is that what we should do? Should we do an NF T for for people have listened to every episode. Can you imagine if I got involved in that? i Oh my gosh, I'm not doing that. But not even close. Don't even word. But I do when people say like I've listened to pretty much the whole show. I'm like, Wow, it's amazing. So thank you. So when you found it. So I think I want to go back a little bit because I find your age of diagnosis. Interesting. You're also

Jenna 17:30
did I didn't even know you could get diagnosed as an adult until I did now I realize it's a lot more common than I thought.

Scott Benner 17:36
But it's that it's that mid 30s thing, where you're sort of like I did it. Like nothing real bad's gonna happen unless like I get the cancer at the end. Like right, like it's not how you feel a little.

Jenna 17:49
Oh, I know. I mean, I feel fortunate that I got diagnosed in a time with all this technology. But it's so hard, you know,

Unknown Speaker 17:57
yeah, out of nowhere, right? Just out of nowhere.

Scott Benner 17:59
General someone is calling my cell phone incessantly. So we're gonna have to do something about that. Hold on a second. Sure. In the hell is happening here. Am I going to call them?

Let's see what it was. It here's my fear is that I think it's a doctor's office, and I'm going to need to do it right. But instead I'm going to guess that it's just a yeah, it's just a call. Daniel from the mortgage benefits of Polasek. listeners. Isn't Daniel calling from the mortgage benefits department? Sorry, we missed you today. Calls to oh my god, leave me alone. Daniel. I'll need your problems. Daniel. Is that That's alright. Anyway, like my phone never rings ever. Nobody bothers me. And then when Jenny and I are doing like a like a thing. I get the Walgreens call like your prescriptions ready to pick up a Walgreens and I complain I hate it so much. And yet I don't go to the trouble of unsubscribing from the phone call for some reason. I'm sorry. So let me refocus mid 30s. Well, actually 32 Right. Yes. Okay. So it still seems to me that that's a time in your life when you kind of think like, like the the juvenile stuff didn't get to me. I mean, did you have other health issues at all?

Jenna 19:31
I've never had any other health issues. Okay. So it was really out of nowhere.

Scott Benner 19:37
And we kind of we kind of substantiated that you were you were on your own you're not you weren't in a relationship at the time. So my guess is you're not living with your parents. You're living on your own. What's that like trying to find a support system?

Jenna 19:51
I will say it is a little bit difficult just because nobody else has any idea how to manage my diabetes even still, but I feel like at first is trying to lie down I was pretty good about trying to learn everything kind of alongside my parents spend their summers, they live in Oklahoma, but they spend their summers out of state. So they actually weren't here when I was diagnosed. But I don't want to give just my dad to credit my mom to both my family is really close. So both of my parents did do a lot of reading, but still, you know, when I was trying to figure out, I took it to myself to start adjusting all my insulin right away. But you know, trying to figure all that out, I still felt like I was kind of, you know, on my own instead of being like a child that, you know, had parents support system or significant other at the time. So

Scott Benner 20:32
did you apply that feeling you have inside about setting goals to diabetes, then?

Jenna 20:38
Yeah, I think so. Because, you know, right away, I did not like to see those high numbers. So right away, I was trying to figure out what I needed to do to get that down and try to get you know, get tight control.

Scott Benner 20:48
What's it feel like, psychologically when your blood sugar goes up? I don't know why. Oh, I wish I should. I should just ask everyone this. I don't know why I don't but like, I imagine a panic.

Jenna 21:02
Oh my gosh, in your like, for me, my mouth gets so dry. It's like an unquenchable thirst. My, like, when I was especially when I was first diagnosed, my vision was a little bit blurry. Like my head was in a cloud all the time. And I was so tired, which I think is probably from the high blood sugar's I had so much fatigue, but then also, you know, I was like, peeing five times a night so I was getting no sleep at all, you know, is terrible.

Scott Benner 21:25
Because I can't sleep blood sugar's I have to be canceling. and by gosh, and by yourself and then, but then there's, did you have that concern about Lowe's back then, too? Or did you not even know enough about it to think about it?

Jenna 21:39
I really didn't. At first, I did have one episode of a bad blow a few months after I was diagnosed. So that really scared me on track. Be careful and make sure that I'm not trying to force too tight of control that I'll get myself low. So I guess I can talk about that if you want me to.

Scott Benner 21:59
are you stopping yourself from talking? Are you worried? No, no. Yeah, well, like I guess if you want it, I could tell you I mean, listen to me if you don't tell me about it, we're done. You know what I mean? Like I got a I got a plan over here. Like, oh, no, shut up about that. I gotta go to my next thought. I don't know my next thought. So how soon into the diagnosis was the scary lab

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Jenna 24:55
November so I was diagnosed in June. So ya know just like bye months, I was five months into it. So I was it was really fortunate for me that I had been set up with Dexcom at that time and I went, it was in November. So I got to my parents house for dinner like the week before this happened. And I said to my dad, oh, there's this like Dexcom follow up. Do want me to set your phone up. You can follow my blood sugar's it'll alert you I go low. So we did. We got him all set up on that. And then it was a Friday night and I had gone to watch, like a thunder game with some of my friends. I came home and I hadn't eaten dinner yet. So I Bolus for a frozen pizza. And I don't know if I over Bolus if I fell asleep. I actually don't know what happened. But my parents had repeatedly called me and I apparently answered the phone, but don't really remember talking to them. So anyways, they end up having to call EMS to come administer, like IV sugar D 50, I assume is what they gave me. Yeah. So that was obviously extremely scary for them and extremely scary for me. So, you know, I learned my lesson there. But living by yourself, as you know, can be a little bit scary, too. I

Scott Benner 25:59
guess one of the things I think about most of them talking to adults, like the idea that they could be living on their own. Yeah. And you know, if I mean, you know, you don't like to think about it, but if your dad's not following you, which you didn't sound like somebody came down and like handed you a decree and said, Hey, you have a Dexcom now make sure someone's following you. You just thought like, oh, this will be a good idea. And then this happens. And it's just a normal thing, right? You tried to go out, you came home, you were hungry, but you were tired and, and your blood sugar was low. And that's it. It's just, and your dad doesn't call and I hate to say it, but who knows, right?

Jenna 26:35
I know, I'm so fortunate because apparently his phone was in the other room. But my mom picked it up and was like your phone's making a sound I've never heard before. And my dad was like, oh, that's just blood sugar. So I also so fortunate that I was on the Dexcom at that time, because, yeah.

Scott Benner 26:51
For people who don't think you're running with your phone in front of your face, and your dad's phones in a different room, we got to get him on Wordle or something. So he, he feels he feels a deep connection to his cell phone and he won't leave it alone.

Jenna 27:04
I know now my mom follows me too after that event. So she and she's really good about it. Every now and then I'll drop in the mornings when I run. I feel bad because they get alerted, you know, very early in the morning and ever. I've never had any other like major issues with Lowe's except for that one time. So I don't know if I still don't know since I was on MDI at the time. If I could have over bolused I, you know, I'll never really know the answer to that. Right.

Scott Benner 27:25
You might have just looked at the carbs and been like, Oh, this is good. And then turn on the oven and like it takes by the way frozen pizza. Nothing says I live by myself and I'm in my 30s like frozen pizza doesn't Oh,

Jenna 27:35
I know. Good story, right.

Scott Benner 27:39
Alright, so we'll build a phone addiction for your parents. I just speaking about my phone picked mine up a second ago like Pavlov's dog you saw when we were like cell phones. I was like, Let me hold my phone. There's the screen. I see the light. Your dad's is off in the other room. He's like, I don't need that thing. I love that. Thankfully, my mom heard it. Yeah. And your mom's got that? Like, I don't know your dad's name. But it's like that bell your phone still? And I know. He's like, That's the girl. Can you believe she got tired? But can you imagine the first five minutes of that conversation before they realized you were in trouble? They were probably like, I thought we were rid of her.

Jenna 28:19
I know sometimes I feel every now and then, you know, I have a nightmare. I dip down a little bit. And I'm like, I know what number they have their phones up for. I'm like, please don't like make their phone beat. Because it's like, you know, having a newborn child in their adult kid that you know, doesn't even live with them anymore.

Scott Benner 28:34
So you tell me about that a little is that? Is that a concern? Like really? Like you don't want to bother somebody?

Jenna 28:41
No, I my parents are great. So they really don't, you know, they don't care. And it doesn't have actually loop now. So I hardly have Lowe's at night anymore. It's just more while I was getting started with things. And so I really I don't I mean, they don't mind if I bother them. I just you know, I just kind of feel bad if that happens.

Scott Benner 28:58
No, no, I understand. I just I wondered if it was in your head or not. This person you're with now? Is that a is that a person who could make it with you later? Yeah, hopefully we'll see. But hopefully, like you can follow through or hopefully your relationship.

Jenna 29:17
No, we've been dating for seven months, but he's a great guy. So.

Scott Benner 29:22
Okay, how was it introducing the diabetes to a new person.

Jenna 29:27
So he's been really good with it too. I'm very fortunate he I eat lower carb. A lot of the time I wouldn't call myself low carb, but he's completely on board with it like me cook at night, you know, trying to stay away from like the pastas, Rice's potatoes, I mean, I'll do that every now and then. But I tried to make a habit of it every night and he's been great. He's good with the lows. He's Yeah,

Scott Benner 29:48
I'm lucky how much understanding seven months is early. So how much understanding Do you find yourself giving it to him slowly because it could be overwhelming, right? Like, like if I met a person if I'm trying to put myself in your situation shouldn't but we're a few days in. And I'm starting to think I wish he knew this and this, but if I tell him this, it might scare him away. Does those thoughts go through your head?

Jenna 30:07
Yeah, I was a little bit worried about that our second date was sushi. And so sushi is notoriously difficult for me. So I was trying to like, you know, look at my Apple Watch, not try to look like I'm seeing what time it is. And when I can get out of here, you know, that type of thing. So you know, but now he's, you know, now he understands. And he's an engineer. I feel like he's like, the kind of guy that researches things. So I think he's done a lot of reading on the side about it.

Scott Benner 30:32
Yeah, they love that stuff. To people on mine, so get you engineers and runners.

Jenna 30:39
Oh, he's not a runner. But no, I

Scott Benner 30:41
mean, the mixed the mix you hang with is interesting, too. That's true. What is it about your, the way you think that lends yourself to those kinds of people? Do you think?

Jenna 30:52
Well, I come from a family of engineers. Obviously, I broke that track when I went into health care. But my dad, my two brothers are engineers.

Scott Benner 31:00
Oh, I see your so do you find that they're sort of linear thinkers, and, and they like, order and instruction and numbers and things like that?

Jenna 31:14
Yeah, I think so. But I I think I'm also like that.

Scott Benner 31:18
So you make it work in healthcare, or is it something else to fight against?

Jenna 31:22
No, I think I think it works. Well. You know, health care is also a goal oriented field and dealing with numbers and things in a different way, but still doing it.

Scott Benner 31:30
What's your one? Say? Can I guess? Sure. All right. I'm gonna guess even listen to podcasts. Three years you run, you're a little low carb, you're looping and you don't like a blood sugar over 140 Or a one C is 5.4.

Jenna 31:45
is actually 5.1. A few weeks ago, when I saw my endo will get

Scott Benner 31:49
you fancy pants. All right. Well, that's a lot of running.

Jenna 31:53
I do do a lot of running, which I think helps tremendously because I take like a week off running, I have to ramp my Basal up.

Scott Benner 32:00
I was gonna ask what your Basal is normally,

Jenna 32:03
it's point seven during the day and point five at night.

Scott Benner 32:05
Do you know I'm gonna ask you how much you weigh. Now, is that okay? Sure. All right, how much? Like 141 40 And your point seven. Okay. And one unit moves you? How far?

Jenna 32:17
About 40?

Scott Benner 32:19
Okay, insulin sensitivity about one to 40.7. That's the running without the running. What's your Basal go to like, 1.1 in there. So I

Jenna 32:29
just put overrides when I don't run. So I'll do like 110% or something like that.

Scott Benner 32:33
So like, maybe 1.4 More when you're not running?

Jenna 32:37
Oh, so I do 110. So use me. Increase it. 10%. So I'm sorry. Yeah, probably.

Scott Benner 32:46
I apologize. I was like around point eight then. Yeah, probably. You caught me. You're like, Oh, God, the podcast. I like the guy can't do simple math.

Jenna 32:54
No, I was like, I don't use that much.

Scott Benner 32:57
Oh, that's interesting. It would have bothered you to think for people to think that you have we're at 1.70 No,

Jenna 33:03
I was just thinking that that'd be back to that pizza incident again.

Scott Benner 33:07
Oh, seven. Oh, 1.7. We're back to my dad's phone making a funny noise. And we know that funny noise was

Jenna 33:19
awesome. Me. You know, in fact, I was at the grocery store the other day and heard that noise. And I was like, I know it's not my phone. And I'm like, I'm getting you know, PTSD. Here. Somebody is low in this grocery store.

Scott Benner 33:28
Did it? Are you the kind of person did you say it out loud? You're low or did you let it go?

Jenna 33:33
No, I didn't say anything. But I was I was looking around to see where it was coming from

Scott Benner 33:38
looking for who's looking for the candy aisle.

hustling for the gummy bears? Which by the way, May I May I just say something about gummy bears for a second. I want to make sure I get the name right here. Let's see. I'm in because this frickin spam call won't stop coming. What is the name of this company?

Unknown Speaker 34:02
They're so good. Oh, here it is.

Scott Benner 34:09
Albany's gummy bears a LBA en ese.

Jenna 34:14
Oh, I've never had them. I should write them down though. You all want

Scott Benner 34:17
to be a sponsor, let me know. Or even just send me a bag of Baris like I'm there. We started using them. We started eating them because my my son's girlfriend was like you guys should try these. I don't know where that came from. She just had a favorite gummy bear. And I was like, How could gummy bears be different? Like what am I talking about here? Right? Because you know, when you think of gummy bears, think of the other brand, right? The Haribo or whatever I mean, maybe people think of different ones. Anyway, eat this thing and it's a life changing experience as far as gummy bears go. This is amazing. So we started keeping them in a little dish and we started to learn that just a couple of them could really move Arden's blood sugar a little bit when we need it to if she's 7080 kind of thing. And just wanted to bump it back a little bit, but the Problem is Jenna and I'm being honest with you. They're a little too good. So sometimes you eat them when your blood sugar is not low. You know

Jenna 35:08
what I mean? I know. Yeah. Sometimes,

Scott Benner 35:11
or sometimes your dad eats them, you know? So, but anyway, there's my gummy bear referral of the week. They're not they're not a sponsor, but if they were, I would be. I'd be so thrilled. I would do an ad for gummy bears no trouble whatsoever. I like talking about them with a lot of love. What other podcasts Do you listen to?

Jenna 35:37
Actually don't listen to a lot of other podcasts. I do audiobooks. I'm actually not a big podcaster.

Unknown Speaker 35:42
I just got the audible the other day.

Jenna 35:45
Oh, I love Audible. Yeah,

Scott Benner 35:47
I didn't need it for school. And then it was over. We still had it. I thought I'm going to try an audiobook. So I downloaded one and I've been listening and I enjoy it.

Jenna 35:56
Yeah. I'm a big fan. But I like to listen to I listen to your podcasts or audiobooks like to and from work and you know, I'm making dinner doing you know, it's easy to multitask and listen to content. That's why your podcast has been so helpful for me.

Unknown Speaker 36:10
Did I get you to looping?

Jenna 36:13
You know, I would say yes. So I considered it. And then I figured if that's what you were doing, that's probably the tightest management or the best way to go. So I started in January, I guess a year and a half ago. So I'm hoping for a year and a half. Because I thought building it seemed you know, I was nervous about it. It just seemed like a daunting task, I guess. And it turned out it wasn't nearly as hard as I thought. So

Scott Benner 36:36
I just rebuilt Lou, and I was even surprised that they've made it so easy now like he just kind of click a link.

Jenna 36:42
And I know I'm like I could be wiring money to China. I don't know what I'm doing here. But I just follow the steps and it shows up on my phone.

Scott Benner 36:49
I love that that's party you're in your head. You're like someone is probably stealing money from me. But I really need this algorithm click.

Jenna 36:56
No, I'm just like, I don't even know what I'm doing on this computer. But this the loop docs really make it pretty easy

Scott Benner 37:01
to do. Hey, do you really got me with I might be wiring money this

Jenna 37:06
lovely that I asked her credit card number. So I knew that wasn't really the case. But I joke with everybody because people are like you built the app. I mean, I'm not like the most computer savvy. I'm just like average. But really, it's not that hard to do.

Scott Benner 37:18
Like I said, I just did it like a week ago. And I was like, wow, this is so much easier now. And it was just it was I mean, with a good internet connection and reasonably fast computer. It doesn't even take very long. Like yeah, that's

Jenna 37:30
why I thought I set aside like a whole entire day if I was gonna make a 10 hour thing and it's absolutely not. It was pretty easy.

Scott Benner 37:36
Yeah, I have to admit I did that. So Jenna, can we talk about that for a second? Because here's the thing. You and I are recording in June, and no one's gonna hear this till Christmas. But I need you to keep your mouth shut when we get off of this recording. Is that okay? Okay. Okay, because timing. You'll understand that a second. All right. And keep your mouth shut was a little harsh. I didn't mean it like that. I know. I gotcha dummy up. Okay. So dummy up. What is that from? An old TV show? What am I thinking of?

Jenna 38:09
It might be a media reference. I

Scott Benner 38:11
don't know. It's Archie Bunker. It's what you there's that's the show you've never seen. You've got your right. Yeah. What was that all in the family? That's what if he told people to shut up? He told them to dummy up. How do I even remember that? That show came out when I was born? It was literally out for seven months before I was born. And I know that man, you people who have streaming services, you have no idea how lucky you are. I was 15 years old watching a 15 year old TV show like it was first run you guys are out watching episode 67 of season six of something that's amazing right now. Anyway, Arden used on the pod five for a while. And we used it for two reasons. I wanted to understand it that was first and foremost. And I wanted to see if it was something I thought Arden could stick with because I wanted it to be I wanted her to have a retail option. I didn't want there to be a Riley link in between the pod and and the algorithm etc. And we figured it out and I understand it now I understand how it works. It's very real. It's reminiscent to the other retail stuff that's available. Okay, but it for for me. What I guess what it eventually taught me was that Omnipod five control IQ they're not competitors with loop. Like to to hold those two things up against each other is a mistake. On the part five is not trying to be loop control. IQs not trying to be loop. Nothing's trying to be a loop honestly, the Medtronic version is not trying to be it. And so where I found it lacking for us was in Target blood sugar and the ability to address a rising blood sugar more aggressively, those were really the two, the two. And when you call them problems, there's the two sticking points that I had. Now I'm watching people online use it, and they're loving it, it's going exactly the way I expected. Not everybody's gonna listen to this podcast the way you did, right. And those people deserve to have blood sugars that are reasonable to. And so the if these people are seeing rises that are coming back in a couple of hours, and not getting low, this is a significant improvement for them. And so I think, I think it's going to catch on huge, and I think people are really gonna love it. It's only been out for a couple of months now that I'm talking about this. But for us, it was, I don't know, we just wanted to go back to loop. So

Jenna 40:49
yeah, we've got some good features too, like being able to set the overrides, like being able to set a time I do that a lot at night, I'll set an override for I usually run at five till 430 in the morning with a really high target. So essentially, it shuts off my Basal. So I have to actually wake up and do it. It's nice that it just does it on its own. You can program it to do it on its own. Yeah.

Scott Benner 41:08
Yeah, no, I mean, there's little Listen, it's do it yourself. It's there's a lot of little options that are great that, you know, didn't have to go through FDA approval and doesn't have to be printed in a manual. And you don't have to train people on and there's a lot of reasons why retail systems don't do some of that stuff. And they're all very legitimate reasons. Like I'm not telling you differently. I am seeing people online, who are setting their range 70 to 180. And coming in range. 100%. And, you know, for someone who more recently had a 320 blood sugar that then was a 46 hours later, it's an amazing improvement from it's going to be amazing improvement for most people using insulin.

Jenna 41:44
I think so too.

Scott Benner 41:45
Yeah, it's, I'm super excited about all of them. I can't wait to learn more about them. And, you know, I figured out ways to manipulate a little bit. But it was it was almost too smart. Like if you manipulate it in one way would manipulate you back and you'd be like, Oh, no, and you're like, Ah, okay, well, I'm one of those things. I mean, it's like if I made like a really good, what I would consider like a good aggressive Bolus on like a heavy carb meal, something that held Arden in the 80s or 90s. For hours after this meal. It was like for hours, I was like I am killing this except the algorithm was like yo, our targets 110. And so for every minute, it was 90, it was trying to get her to 110 taken basil away. And then when my grave Bolus left, there was a black hole where no basil existed, and then she'd head back up again. Now it would see that but it wouldn't, it wouldn't address it to 110. And then it was addressing it not aggressively enough to stop at 170. Okay, so even if I created a 90, I couldn't avoid the 170 later, I was either having it on one side or the other. If I would have made like, you know, if I would have made a less aggressive Bolus and held her at like 120 after a meal, then I think then the algorithm would have stayed in the game a little bit. But I was just like, I don't know, like, it's I'm so accustomed to doing it the way we do it. But anyway, I wanted to have the experience. I had it. It's amazing. And, and I know how to talk about it now. But we did switch back. So

Jenna 43:15
yeah, I'll be looking forward to that episode. I agree. It's gonna be a game changer for a lot of people. Because I know loop is a lot for a lot of people, you know, to try to even think about doing

Scott Benner 43:25
Yeah, oh, are you kidding? Like, I was in a panic when I you know, artists, like I'm gonna, you know, when are we going to switch back? We had been talking about letting it go for a while and everything. And the other thing too, I should mention here is that we still aren't as having trouble with our hormones. Like we're still speaking with Dr. Spock, and your hormones balanced everything like her insulin needs might be heavier than most people's. Like you don't I mean, so. Who knows if, if we don't figure out this kind of imbalance that she has, and maybe we can put it back on again and give it another try, which I would absolutely do. The system was terrific. It was easy to use and you know, kind of carefree actually. So, anyway. Oh, anyway, what she said was like, when are we going to do this? She got up one morning, she's like, Hey, my paws gonna expire today. Today be a good time, but I have to leave at one o'clock to go to a graduation party. It was like 11 o'clock. And I sent Kenny a message Kenny from Fox, the fox the loose bow loop. Oh, Fox in the loop help. Oh my God, John. Kenny from the fox in the loop hop loop while loop. Holy shit. This is it. I'm gonna start over Kenny from the fox in the loop house episodes. What was happening just anyway, he helped me He's very nice. He sent me a little information that I needed. And I just pushed on in like 90 minutes. We were running again. It was great. Yeah, it was not difficult. And I would tell you probably Probably it was a new pod. Plus, we were switching from one algorithms idea to another probably took about six hours for the new algorithm to kind of find its, you know, its rhythm a little bit. But anyway, there's no losing here. Things are so much better. And an options on the pod five control IQ by tronics do thing I think isn't quite out yet. And you know, if you want to go do it yourself loop, so I'm sorry, I talked so much there. But

Jenna 45:28
oh, no, you're good to see. That's what I mean, when I first got diagnosed three years ago, I didn't even you know, most of these algorithms weren't even out yet. I guess loop was, but you know, the, really the diabetes market has changed significantly in the last few years. So fortunate for that.

Scott Benner 45:41
No kidding. I mean, look at you, you're wandering around with your five, one a one c three years after diagnosis. That's amazing. Thanks. You deserve it. So I'm sure a lot of hard work in there to figuring things out. Like you said, you did a ton of reading in the beginning just to go running. And now you probably have a process you use with your algorithm to run, how do you do that?

Jenna 46:05
I do. So what I do is I basically have a target glucose of 500, which essentially shuts it off. I guess you can also turn the pot off at this just as easier for me to do so I turned to my basil off about 30 minutes before I go run in the morning. And then I turn it back, turn the basil back on about the 10 minutes before I'm done running. Because otherwise, you know, like you always say, you know what you're doing now is for later. So if I don't turn it back on before my run, then I end up going high after I'm done. But that seems to work pretty well. For me. It's different for me if I run after work, running fasting really works so much easier. But if I exercise later in the day, I have to cut my basil out significantly earlier. 30 minutes doesn't work. I think in the morning, I might be more insulin resistant.

Scott Benner 46:50
So two questions. So running without any active insulin is easier. Absolutely. Yes. And do you when you cut your basil off for how long? Are you cutting it off? For like, how long are those runs?

Jenna 47:02
So usually before work I like on work days, I'm usually run about five miles. So less than an hour, okay. 45 minutes or so

Scott Benner 47:11
I was asking because of I mean, if you're running for a long, long time, then having no Basil is not a good answer. Because you could go into DKA easily.

Jenna 47:19
Right? So I use a small amount of basil during long runs. And I also Bolus really tiny bit like a quarter of what I normally would for the amount of carbs I'm consuming. So I do use insulin during those.

Scott Benner 47:31
Yeah, not that listen. Not that I didn't think you were but it just felt important to say here that people out there yes, you could have a what looks like great blood sugar. But if you don't have insulin, you could still go into decay. So you could get a 95 blood sugar be running for three hours without your Bazelon and still have a medical emergency. So you do need Jenna's like I didn't say that. No one said that. Stop it. Now I just wanted to be clear. Okay, well, what if I not asked you? Oh, I started leading into so first of all, it sounds like you'd like this boy, John, which is nice. And but you're thinking of kids like for yourself? Maybe not with him, but your kids or something you want to do?

Jenna 48:14
Yes. Okay, boy. 35. But hopefully,

Scott Benner 48:18
I you starting to feel like this is it?

Jenna 48:22
What do you mean by that?

Scott Benner 48:24
timewise? Yeah, no,

Jenna 48:26
I mean, I don't know. I think I still have some time. But my friend is an OBGYN. I was joking with her. I'm like, they're gonna love me when I'm like, in my late 30s with type one diabetes, saying I want to have a baby. No, but I've tight control. So I think that should be okay.

Scott Benner 48:39
How many children? Do you imagine yourself with?

Jenna 48:43
One or two?

Scott Benner 48:45
There are a lot of trouble.

Jenna 48:49
I know my brother has two little ones. So they're also a lot of fun. Yeah, the little ones are great. They're the ants that being an EN is the fun part. You know, it's not

Scott Benner 48:56
until the it's not until they can think on their own. And they cost a lot that it becomes really troublesome. That's true. That's true. So having their own theories about life, and you're like, oh, no, like, I'm tired. I'm old. Like, you don't know this yet. But 15 years from now, you're gonna be like, I don't want to hear your thoughts on this subject. of my own, although it's great because they bring in, you know, they bring in another generation of ideas. And it is I'm joking, halfway, like, the part I mean is it's great to hear their thoughts. And it's great to even try to learn more about the world through their eyes. But there's moments when they're making decisions, and you're like, I think I'm right here. Like, I don't think they should be doing this, you know, and so you when they were little, you just sort of like turn them like Look over here. And then when they're older, you're like, well, here's my opinion. I hope you consider it and it takes that parenting thing and it turns into something different. That's true. You have to keep adjusting with it. It's a lot like everything else in life. You're not done. If you really want to be involved. You're never done being flexible. That's true. And then the money's terrible. So you have kids hope they're going to be nice blue collar people who go out and get a nice job that doesn't cost the college education because they're really expensive. It's too

Jenna 50:17
high. No.

Scott Benner 50:19
Are you paying me?

Jenna 50:21
So I have a tiny bit left on my student loans from PA school. I was fortunate enough my parents pay for undergrad. But I'm almost done. So next year, I can be debt free.

Scott Benner 50:32
How are you planning on paying? What are you gonna do? Oh, well, they

Jenna 50:36
they were nice. They gifted us our undergrad education. So I so once I finished my student loans for PA school that I won't have any more. I won't owe anybody anything.

Unknown Speaker 50:46
No big plan, though. Jenna. To celebrate paying them off. To help your parents out. Like, kick back. Maybe. Oh, I

Jenna 50:54
see. Okay. Yeah, no. Oh, I give them medical advice all the time. So there you go.

Scott Benner 50:59
Searching for your time. Jenna, that's pretty crappy, but okay.

Jenna 51:05
They call me if they're questions. Hi, mom.

Scott Benner 51:06
Hold on a second. I'm just gonna set the timer. Go ahead. What's your toe doing?

Unknown Speaker 51:15
I know, right? How tough is that? Does everyone do that with you?

Jenna 51:20
I will say get it pretty regularly. But I have to you know, most I do adult cardiology. So my friends call me with, you know, their kids rashes and this and that. I'm like, I gotta remind you guys, I do adult cardiology. I don't know that much about kids. I don't want to give you advice on your kids rash. But now Now my friend's parents are starting to hit the cardiac world. I didn't

Unknown Speaker 51:44
know exactly Mom, tell Jenna, where it hurt.

Jenna 51:48
Chest pain? Can you get him in tomorrow? So I do hear some of that. But that's alright. I try to help when I can.

Unknown Speaker 51:53
Have you ever caught a problem?

Jenna 51:57
You know, I guess I will say I had my mom's friend take her husband to the ER recently. And that ended up being something that needed to go to the ER so glad for that.

Scott Benner 52:10
Just talk to a friend of mine, got a bug bite and swell up. He showed a picture to his daughter who's a nurse like just texted her. She showed it to a doctor who then said your dad needs to go to the ER right now. And went to find out he had been bit by a brown recluse spider in a part of the country in a part of the country where they shouldn't be, which is great news for all of us. And he was like days away from losing his hand. Oh, that's crazy, I think. And I know the guy who's headstrong? I think if his daughter wasn't a nurse, I don't know what would happen to you know, my

Jenna 52:49
story is not as good as that. But I actually did catch one thing on Facebook, which I forgot about. So a girl I went to college with just like peripherally know and was Facebook friends with posted a picture of a quote spider bite, but it was clear cut bullseye rash for Lyme disease. And I did tell her I like sent her a message on Facebook. And I was like, I think you need to go see a doctor that looks like Lyme disease. And sure enough, you know, they ended up treating her and she was fine. But no doubt that's what her rash was. So not as bad as a brown recluse. Yeah,

Scott Benner 53:15
I just had a thing where I wish I knew last week I was in the lawn for a while fixing something. And then next day, I had this little lump between my thumb and my forefinger on the top of my hand, I was like it was hard. And I was like Something bit me and then started to itch really badly. And then another bump popped up like on a different finger, and then a third bump, and then a fourth bump. And then they were all itchy. And then the itching became systemic. And Jenna aged in places we're not going to talk about we don't know that well, where I definitely wasn't bit by anything or didn't touch anything with these bumps. Because once you get a bump on your hand, you know, you reach with the other hand. And so I've been very, very careful about all that. And maybe and I kept being like, oh, Something bit me. There's no way I'm not going to overpower this I'm gonna reasonably healthy person. Well, five or six days later, I started getting tired in the afternoons out of nowhere. And I was like, what is happening? So between the itching and I could tell it was systemic because I was having like a histamine response, like, like there were there were places on my body that if I didn't touch them, they were fine. But if I just brushed by them, they became incredibly itchy. And then if I itch them, there was like swelling no matter where it happened. And my wife's like, will you go to urgent care as like one more day? And I'm like using Flonase and like taking I don't know, I don't know. Stuff medicine, I thought was gonna help. Who knows. But I just woke up one day and one of the lumps from the right hand was on the left hand and I'm like, I'm done. And so I went in and they hit me with a steroid pack and boom that fixed everything. Really

Jenna 54:53
cool. Sounds like me one more day my diabetes diagnosis I was just like put this off till tomorrow, right.

Scott Benner 54:58
I kind of told him Because of that, because I think people feel badly. But it's it's in everyone's head like there was no reason for me to not go three days sooner when my wife's like, what are you doing? Like? What's the point of this? You know, at this at this juncture, I'm like, it'll get better, it'll get better. And like, it wasn't getting better. It was getting worse.

Jenna 55:18
So yeah, clear it cleared up with steroids. That's good.

Scott Benner 55:21
Well, Jenna, can I tell you another part of the story? Sure, the pharmacist mistyped the directions on the steroids. So I took a lot of steroids in the first three days that I wasn't supposed to take, apparently, and really kick the crap out of it. But about two and a half days in, I took a hot shower, and I got a hot shower. And I was like, my chest is tight, and my neck is tight. And I was like, what is happening, and I cooled down, and I was okay. And then that made me think about the medication the next morning, and as I was putting them out on the table, getting ready to take three of these tablets in the morning, which I was supposed to be taking. I supposed to be taking two in the morning and two at night. She had me taking three in the morning and three at night. And and so by the way, a local pharmacy it's it's not it's not anybody who's a sponsor, nobody were and. And so as I'm shaking them out on the table, I think I don't have enough to get through this script. And that's the only thing that stopped me didn't thought like, I'm taking too many of these. Then I went back and we straighten it all out. And it you know, it wasn't terrible, but I think it did. It did explain the tightness in my because I like, like, tightness across my neck and my shoulders. I think want my heart just started beating really quickly. And but I'll tell you what, it really kicked the hell out of those lumps. No problem. They weren't even a rash. It was just bumps. They were weird bumps. And it couldn't even Sam are very strange. Anyway, Jenna, what have we not talked about that we should have so far.

Jenna 56:54
I guess there's only one more thing that I kind of wanted to talk about. And I so I always feel like low carb is polarizing amongst the diabetes community. But I do think in regards to exercise, it works really well. Because I always see people posting like, you know, we can't get through recess can't get through gym class. And I think it's kind of the mentality that I've, you know, taken on, like, if I want to go, you know, not even just running, you know, if I want to go do go for a walk at night, go do other, like, you know, exercise, like if I, for example, if I run after work, and I'll eat low carb lunch, which I think is extremely helpful because I don't have a whole bunch of insulin on board. And I can usually get through a run versus if I eat like, you know, pizza for lunch or something that's gonna take some corrections or like extended Bolus or something like that. But I always feel like you know, I can't put myself in team low carb because I don't eat low carb all the time. And I eat pizza, sushi burgers, I'll go out and do that kind of stuff. But if I know I'm planning to exercise later in the day, I think it's really helpful to do like, I do like charcuterie boards or meat, roll up type thing, salad, those kinds of things. I do think it can be helpful in certain situations.

Scott Benner 57:59
So I think I agree with you. And I think that the, the mistake we're all making is he's talking about like, it's like, you just you just made a great point where like, you can say, well, it's easier to like exercise if you're on a low carb lifestyle if you're using insulin. But what you're really saying is, is that I don't use as much insulin because I'm not battling as many carbs and because that I don't have as much active insulin when I'm outside trying to run. So exactly. You could you could probably, I mean, not that this is a apples to apples, but you could probably accomplish the same thing with more carbs if with carb, heavier food, if it was just fewer of them. If you were just using less. And I'm not saying it would it's not easier with a low carb lifestyle. I mean, obviously is. And I also think that the arguments you see online are seasonal. out true. Yeah. Right. So and I don't mean like winter, spring, summer, fall, I mean, eventually, something I've been in this space a long time, eventually something happens that gins people up. And then people come out of the woodwork and scream and yell for a while and then somebody comes out and tells me Don't tell me how to eat and then they fight and then it's over. And then it lingers. And then it's gone. Like I have on my Facebook page, I have like keywords set up, so I know. So we know where troubles about the pop up. Okay. So, so we can kind of keep keep track a little bit. And you'd be amazed that you can go three, four weeks and the word low carb will come up 800 times a day and then all of a sudden it stops for months.

Jenna 59:44
Oh, that's interesting. And it's it makes sense. I do agree with you. I go through periods of time where you see a ton you know popping up on like my Facebook feed for the group or something like that. And then you don't hear about it for a while.

Scott Benner 59:54
Yeah, and I understand I've said this before, and I steadfastly I stick to this. I think It's just people who have found something that works for them. And they're trying desperately to share it with other people. They feel like they've found a secret, you're struggling for no reason they want to tell you now, I've also seen people listen to this podcast who would do the same thing and said, Look, I eat whatever I want. And my one season the fives. And it's because I learned this thing on this podcast, but how to use insulin. The mistake we end up making is thinking that these things are mutually exclusive. Like you either have to eat a bunch of carbs and really know how to use insulin, or you need to eat no carbs and use a low amount of insulin like why can't they all just be skills in a toolbox?

Jenna 1:00:35
That's I agree, I completely agree. So I just feel like low carb is a tool I use when I know I want to do something later in the day. Like, and also, thanks to your podcasts. I think I'm pretty good at using insulin most the time. I mean, I had a terrible Miss last week and eating far. But in general, I can Bolus for like the same pizza place I get pizza from I do a pretty decent job. Like you know coming to exercise later in the day. I know that is not the right lunch to go for you

Unknown Speaker 1:00:59
know, they make pizza in Oklahoma. There's a lot of pizza in Oklahoma isn't any good job. To be honest.

Jenna 1:01:06
There are some good pizza places. I feel like Oklahoma is like lately. Everything is pizza burgers or tacos. Everything that pops up around here.

Scott Benner 1:01:15
Austin just bleeding all over the south. I see what

Jenna 1:01:17
you're talking about. Probably true. Yeah.

Scott Benner 1:01:18
You know, other things. I'm trying to find the girl's name as an example. So some girl with type one is on American Ninja something last night? Yes.

Jenna 1:01:31
All right. I didn't watch it. But I saw about that, you might

Scott Benner 1:01:34
think that we landed on the moon again. If you're, if you're in the diabetes space, you would think we just found a way to like, I don't know, get water to Mars or something like that. Like it's gonna be super easy. We're all gonna leave the planet. It's going to be terrific. If this girl like competed did well and she had diabetes or CGM was out on her arm. And I've, I'm looking at 100 notes. You have to have this person on the podcast. And I'm like, Oh, I mean, one day, maybe, you know, but I what I ended up telling them what she's gonna get inundated by every diabetes like media outlet. And I'm like, I don't want to be a part of that. Like, because they're all just going to ask her the same silly questions and who cares? It's going to be boring. Right? What's their name? Here? If she's hearing this now, six months later, hey, six months later, congratulations, Katie. Bucha is a bone.

Jenna 1:02:27
Bone, I think is what I saw this morning.

Scott Benner 1:02:29
All right. Well, Katie, great job. Very cool. If you want to come on now, that'd be amazing. But I don't I don't want to hear her. Like, I got diabetes. And it was really more of a blessing that like because she doesn't you know what I mean? Like, I like people to have distance between their story and telling it. Yeah, that makes sense. Yeah. And so anyway, but that's not the point. The point is this happen. And now if you look at the diabetes space, today, tomorrow, the next day, it's all going to be about this girl. Which cool, I'm good with. But it's sort of just like the thing with the low carb like, you, you like the fire and then people are focused on it. And then then they give up a little bit, and then it goes away. And then I you know, I I one time misspoken a celiac episode, and you know, people online for days, we're like, Scott, you said the wrong thing. And I'm like, Okay, well, I'm like, we'll fix it, you know, and, and it becomes the most important thing in the world again, because the celiac example these people, they know something I didn't know. And it was very simple like apparently something like called like quiet celiac or something like that, where you're still you're getting the damage, but you don't have any of the symptoms. And I was talking to this guy who was really stressing out about his kids celiac diagnosis. And I said, it he was talking about he was very fixed on a cupcake talking about a cupcake at a birthday party. And I finally said, like, I made birthday parties just kick go to exactly, you know, and he's like, not many Oh, my God, just let her have a cupcake. And boy, people who understand silent celiac were like, no, like, okay, like, Tell me about it. We'll go back on and we did I had somebody on we had a nice conversation about it, like, whole thing. It's, you know, how people learn, but it's not like, but that episode still gets downloaded all the time, but I don't hear about it anymore. Okay, you know what I mean? It's just the interest rate. It's interesting how things ebb and flow on social media. That is true. But it because I've seen I and I also believe that the low carb wars that I've seen online are not as aggressive as aggressive as I've seen them five years ago. Oh, that's good. Yeah. So hopefully people just live and let live and

Jenna 1:04:45
yeah, we're all in this together. You know,

Scott Benner 1:04:48
share your thing and and let people pick I love the podcast for that reason. I think there's a ton of different information in here. You can take his whatever bit of it you want and use it and make your own thing You know what I mean?

Jenna 1:05:01
Oh, yeah, I've learned so much from it or Pro Tip series, definitely recommend that.

Scott Benner 1:05:06
You want to say something really nice to me and you're just you're embarrassed.

Jenna 1:05:10
No, it just helped me a lot. It's I feel like when I was first diagnosed, I was like, kind of distraught. And I couldn't even absorb what my endo was telling me. So, you know, she's great. And she, I'm fortunate because she, I mean, she loves my Loei. When see, it's not like a lot of the things I read about online with these endos who aren't as supportive, but I just was like, not mentally able to absorb it. I was supposed to do so well with this insulin. So I feel like I learned a ton from the podcasts. I can, you know, listen to it, you know, once I was kind of ready to start trying to learn to manipulate things, and you know,

Unknown Speaker 1:05:42
nice. That's excellent. How long did it take you to run the Boston Marathon?

Jenna 1:05:47
So that was not a good marathon for me. I was poorly trained. So that one took me three, I think 359 or 358, something like that. But the one I my fastest marathon ever is still the one that was 11 days after I got diagnosed diabetes. I did that. 323 I think is what it was.

Scott Benner 1:06:07
Wow. That's it. You know, if you wouldn't have told me I wouldn't have known one way or the other what the number meant or didn't mean you could have just been like 350 I would have been like That's amazing.

Jenna 1:06:17
Oh, it's I mean, it's not a bad marathon time just wasn't was not my best marathon. I was. I had some issues my shoe cracked like it was crazy. Like the heel of my shoe. The foam like really? Like cracked. Yeah, it was like literally my right heel was like flapping around. So that was obviously a distraction.

Scott Benner 1:06:36
Curse by any chance Jenner when

Unknown Speaker 1:06:37
that happened? Oh, I'm

Jenna 1:06:39
sure I did. I was mad. I noticed that a mile 16 is not a long ways to go still.

Scott Benner 1:06:45
I'm stalking you on Facebook now. And you went to my nephew's college is out right now. Oh, did I really? Don't say it out loud. But yeah, you did. Yeah. That's nice. That's really nice. Do you have other marathons in your future?

Jenna 1:07:01
Yeah, honestly, I have nothing scheduled right now. But Philadelphia is the week before Thanksgiving. So I may try to get through that one. That's the first one I ever did back in 2013. So I thought maybe I'll return to it.

Scott Benner 1:07:13
Yeah, that's nice. You go to Chickies. And Pete's while you're here, too.

Jenna 1:07:15
I could. Yeah. I love the Philadelphia marathons. It's pretty cool. The first half goes downtown, the second half like Alamanni on comeback, but it's pretty nice. Well on the water. You do? It's like it's yeah, basically it's on Kelly drive. I think if I remember correctly, that like shut it down. Yeah. Oh, that would be

Scott Benner 1:07:33
nice. Hey, where do your parents flock to when it gets hot in Oklahoma?

Jenna 1:07:37
So they have a beach house in the like very southern tip of Delaware. Like Ocean City, Maryland. Fenwick Island. Okay. Yeah. Right. By Rojava.

Scott Benner 1:07:46
Yeah. So they're running from the heat, right? Or they want to know,

Jenna 1:07:50
lucky them. I'm jealous. I was like, 104 here last weekend. And there. There was time. It was like in the 60s there. So

Scott Benner 1:07:58
is that manageable for like, how does that change your diabetes? Does that impact like your basil and stuff? Where do you see the do you see the algorithm doing more work in the heat?

Jenna 1:08:06
Yeah, it does, actually. So I have I'm, like, need more insulin and when it's hot, and I drop when it's cold, but I don't know if that's the same for everybody. I do find that with Arden.

Scott Benner 1:08:17
So, Jenny, it's funny when I bring this up with Jenny, there's a finding diabetes or variables episode, excuse me about temperature. And Jenny thinks about it. Like, interestingly, like she's like, if you go out in the cold, you shiver, and that burns energy. And I'm like, Really, and and there's some people as they like, you get in the shower and the heat up and my blood sugar drops and people some people say I get in the shower and I heat up my blood sugar goes up. So obviously it's not very scientific. But I did see I do see people having to readjust their Basal during the summertime. Now does that become? Is it about hydration? Like do you get dehydrated and your insulin doesn't work as well? Or?

Unknown Speaker 1:08:59
I don't know. I don't know. I don't

Jenna 1:09:01
know either. It's I joke that like at Christmas, I could just go stand outside in the cold after eat all this junk and my blood sugar would go down, you know, but mine spikes every day if I take a hot shower, which I just consider using as my Pre-Bolus for breakfast because you know my loop will ramp up my basil a little bit. So

Scott Benner 1:09:18
that's interesting. So you jump in the shower your blood sugar goes up the loop gets aggressive and then you're ahead of breakfast a little bit.

Jenna 1:09:25
Yeah, that's so actually breakfast right after that.

Unknown Speaker 1:09:28
How well does the loop do with that?

Scott Benner 1:09:29
That that shower spike, where does it take? Where does it hold you?

Jenna 1:09:33
I mean, it doesn't usually spike me like too high but like, probably 20 points, which I mean loop will react to that. But if I open the loop, that spike comes down on its own. I mean, I don't have time to mess with that every morning. I'm opening the loop, so it's fine. You know, I just basically Pre-Bolus My breakfast or my coffee. But yeah, I do notice that every single day so I think I'm really sensitive to temperature.

Unknown Speaker 1:09:56
What's your blood sugar target and loop

Jenna 1:09:59
100 Oh no on loop. Sorry. It's a like, I think 86 to 98 or something like that.

Scott Benner 1:10:04
has one of those weird like ones to look at you? Like? Yeah,

Jenna 1:10:10
yeah. 8696 actually what is now? I think it was 98. I changed it a few weeks ago.

Scott Benner 1:10:14
Yeah, Origins is right in that range to use an auto Bolus or the other branch. No, I

Unknown Speaker 1:10:21
use auto Bolus Ivens or

Scott Benner 1:10:23
Pete's?

Jenna 1:10:26
Oh, no, I don't know the answer to that. Whenever you APs. Wait, no, not free APs.

Scott Benner 1:10:33
As frequently is free pap s, but I'm even thinking of, there are so many different names of different things.

Jenna 1:10:39
I know. I know. That's why I was so nervous. I had to rebuild in February. And I was like, literally dreading it. And it was so easy. So I don't want to discourage anybody from trying. Whoop, because it really is not that hard. It's just the idea behind it sounds stressful.

Scott Benner 1:10:53
Yeah, no, it's this is very interesting. All right, Jenna, you were great. I can't tell. Did you have a good time?

Jenna 1:11:01
I did hope I wasn't. So hopefully I talked enough for you. Oh, are you kidding?

Unknown Speaker 1:11:04
You're quiet.

Scott Benner 1:11:05
Okay. No, you were terrific. I just thought I'm, like, there were times where I felt like you wanted to say stuff you didn't say. And then I was like, am I running a rover? I couldn't figure it out. But you're in your 30s you can fight for yourself. So?

Jenna 1:11:18
Oh, no, I don't think so. I I think I got out everything I wanted to say.

Scott Benner 1:11:21
Excellent. That's cool. So you're happy with this?

Jenna 1:11:26
I'm very happy. Yeah. Excellent. Thanks for having me on.

Scott Benner 1:11:28
No, are you kidding? It was terrific. I

appreciate you want to do it. I'm flabbergasted that anybody wants to run anywhere. So like I'm looking at, like, there's still a picture up like on a different monitor. I'm still like looking at your stuff. And it's just a photo of people crossing the finish line. I was like, Oh my God, what? What happened to those people to do what to do? And then I think the same thing me like, why don't I want to do this?

Jenna 1:11:52
Oh, you know, you gotta like it. Because running is a time consuming sport, especially marathon training. But it's probably that type A personality and makes first i It was a bucket list item in 2013 when I ran Philly. And then I was like, Well, if I could finish, I could probably get faster than I was going to probably qualify for Boston. And so that's, you know, went down that rabbit hole. So here we are, I've done five marathons with type one diabetes, so

Scott Benner 1:12:16
I do anything else anymore. Do you do anything else falls similarly into that category. Aside from running.

Jenna 1:12:22
I go to like spin class sometimes, but not that often. Because honestly, I run with this group. So it's social. So I don't like to miss out. So I got to show up every morning. You know, my friends are there we run from a Starbucks, we run and get coffee. So maybe I am crazy that I'm sitting there at Starbucks, you know, like, 545 in the morning when I could be in bed. But you know, it's fun.

Scott Benner 1:12:43
No, I listen, I'm mostly joking. I think it's amazing that you have a thing that you like, I love that you're setting goals. And I think everyone should do that. I think physical activity is incredibly important. I think people are happier when they're active. I think that insulin works better when you're active. There are a number of reasons, aside of diabetes, that you'd want to be active like this, and there are a number of reasons with diabetes that you would want to so I think it's great. I just listen, it's just one. It's just one person that sticks in my head that, you know, it's probably hurting more than it is about running. But

Jenna 1:13:16
yeah, I know that I know the type you're talking about. Yeah, definitely don't fall in that category.

Scott Benner 1:13:21
I'm gonna stop for the recording and I'm gonna tell you one more thing. Okay. Okay, thanks so much. Sure. Yep.

A huge thanks to Jennifer for coming on the show today. And I'd also like to thank you, us Med and remind you to go to us med.com forward slash juice box or call 888-721-1514 to get your diabetes supplies the way we do from us med. And don't forget to check out touched by type one.org touched by type one just invited me to come back and speak at their next event. And I said yes, you should check out their website and see when it is touched by type one.org. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast and don't forget to check out the private Facebook group Juicebox Podcast type one diabetes