#1657 Bain’s Mom Marlee (TikTok) - Part 2
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Scott talks with Marley, mom to one-year-old Bane, diagnosed after DKA and a life flight. From ICU to CGM and Mobi, she shares hard-won reality, faith, and growing TikTok advocacy.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends, and welcome back to another episode of The Juicebox podcast.
Marley 0:14
Hey, my name is Marley. I have a type one diabetic, one year old son named Bane. And you may have seen us on Tiktok or Instagram and now even Facebook, but we just post our life as a family handling type one diabetes and our toddler son, and just go with the flow and do whatever.
Scott Benner 0:39
This is part two of a two part episode. Go look at the title. If you don't recognize it. You haven't heard part one yet. It's probably the episode right before this in your podcast player. If this is your first time listening to the Juicebox podcast and you'd like to hear more, download Apple podcasts or Spotify, really, any audio app at all, look for the Juicebox podcast and follow or subscribe. We put out new content every day that you'll enjoy. Want to learn more about your diabetes management. Go to Juicebox podcast.com up in the menu and look for bold beginnings, the diabetes Pro Tip series and much more. This podcast is full of collections and series of information that will help you to live better with insulin while you're listening, please remember that nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. Today's podcast is sponsored by skin grip. Your devices, they can fall off, but with skin grip, they stay secure for the full life of the device. Juicebox podcast listeners will save 20% on their first order at my link, skin grip, Comm, slash, Juicebox, if you want a durable skin safe adhesive that lasts you want skin grip. This episode is sponsored by the tandem Moby system, which is powered by tandems, newest algorithm control iq plus technology. Tandem Moby has a predictive algorithm that helps prevent highs and lows, and is now available for ages two and up. Learn more and get started today at tandem diabetes.com/juicebox the episode you're about to enjoy was brought to you by Dexcom, the Dexcom g7 the same CGM that my daughter wears. You can learn more and get started today at my link. Dexcom.com/juicebox dexcom.com/juicebox, I mean, obviously he's very little right now, and the world's a different place, and kids are more accustomed to this. This is like, a thing. But have you given thought to like, how long would this go for? And at what point does he get an opportunity to say, like, I don't want people seeing this, or like, I mean, it's got to go on through your head, right,
Marley 3:02
for sure. And I get those comments. I used to get them a lot more, but I never did this for followers or for anything that Tiktok has brought Like, I literally posted a video of me put on his Dexcom, really, to just show my friends like, this is the life that I have to live. This is why I don't work anymore. This is why I can't go hang out with you right now, because I'm busy watching my 15 month old with diabetes. So when I post videos now, I'll never force him to sit on the couch and be like, film this video like that's just not how I am sure if we're outside and he's doing something crazy, I'm always having my phone out anyway, taking videos of him way before Tiktok, just because that's the kind of stuff I want to remember when he's acting like that. So when he gets older, if he ever tells me, like, I hate this, I hate that you did this, I will, you know, apologize to him. I will take anything down that he wants. But also, I feel like his story is reaching so many more people that aren't diabetic and don't have any family with diabetes and don't understand type one diabetes, and I feel like he has a purpose and a testimony that should be publicized. I don't tell every single thing about him. I don't tell, you know, I don't tell his numbers or any I don't do that type of stuff, because there is stuff that should be private. Like, yeah, there's stuff that should be private. He's my baby, but I do want people to understand I feel like people need to understand diabetes and toddlers so that he's safe in the real world. He can't even go to daycare. You know what? I mean, I
Scott Benner 4:39
spent a while of my life sitting in a car outside of a daycare so Arden could go to daycare.
Marley 4:44
Yeah, like, I can't even send my one year old to a daycare so I can go work. No, it's tough because he's not safe. And the reason he's not safe is because look at all these trolls on the barbie launch Facebook group, from Facebook page, commenting all those horrible. Things about diabetes, like, that's the reason he's not safe, because people think just don't give him the brownie, he'll be fine,
Scott Benner 5:06
yeah, right? Or that you've willfully done something wrong, and therefore you don't, I don't know what deserve, like, good health or something like that.
Marley 5:14
You know, you don't know who you'll be dealing with. Like, he's just not safe at this point, and he can't commute, yeah, he's starting to communicate, and he's starting to learn what feelings are in his body, and when he goes low, how he feels, or if he's high, he's starting to kind of feel that stuff, but he needs somebody to advocate and talk for him and teach him. And you know, people that don't understand this, ain't we
Scott Benner 5:38
get along. Because I feel like what you're telling me is you can't tell one head from somebody who's not a shit.
Marley 5:42
So exactly, you don't know if that daycare teacher was on that Barbie launch talking
Scott Benner 5:46
crap. Yeah, no, no, no, I hear I felt like that's what you were saying. And then as you were talking, that is definitely what she's saying. She's like, I can't tell the good ones from the bad ones. Just looking at
Marley 5:56
them and those comments were horrible. Did you see them? Horrible? I had to stop.
Scott Benner 6:00
I've been at this a long time. When the Barbie doll came out, I already knew exactly what was going to happen.
Marley 6:05
Like, I had to stop. I was like, it was horrible. I was feeling, yeah,
Scott Benner 6:09
you know, we do this thing in my Facebook group, like, when something like that happens, I wait about 12 hours, and then I'll put up a post, and I'll be like, hey, has anybody heard about this Barbie doll thing? Because, like, there's already been 1000 posts about it. And then I'm like, anyway, I'm joking. Can we stop posting about the Barbie doll please? Like, the whole page is, like, consumed with it. We all get it. And then what I don't say out loud, but I'm thinking, is, like, 54321, the crappy comments are gonna start.
Marley 6:35
Oh yeah. And they and they always are there, no matter where you go. Like, there's gonna be crappy comments. Well, you know, you just block them and keep on rolling.
Scott Benner 6:44
But then some people are gonna get insulted by it. Then some people are gonna get, like, zealous about it, like, we have to fix this. And I'm like, Are you ain't gonna fix this? Like, just
Marley 6:52
some lady told me, she said I had glasses and buck teeth when I was little, and they didn't make a Barbie for me. I said, Well, I wish my child had glasses and buck teeth over diabetes.
Scott Benner 7:03
That's a pretty interesting statement to make. Yeah. What a comparison. Oh, your child, that's what I said.
Marley 7:09
What a comparison, like buck teeth and glasses and there is Barbies with diabetes. I mean, with glasses.
Scott Benner 7:17
Like, what do you mean? You know, don't you feel like sometimes people think they're being deep and they don't realize they're just dumb.
Marley 7:25
I'm like autoimmune disorder that can kill you if you don't have insulin over glasses and buck teeth.
Scott Benner 7:30
Okay, those comments eventually become every level of people's political ideation. Like, right? Like, why don't we just keep making Barbie dolls? And you know, they don't need to be for anybody special. Like, did somebody say, like, what's gonna happen next? Is Barbie gonna be in a wheelchair or something
Marley 7:46
like that? Yeah, there was like, what's gonna be next crackhead Barbie? I'm like, What do you
Scott Benner 7:51
mean? Can I say two things that's not a child friendly doll? So I don't think that's going to be,
Marley 7:56
yeah, exactly. Barbies are for kids, right? But what people would say, or, Why are we Norman normalizing needles? I'm like, we can't help that. You have to inject insulin. Like, my toddler can't take that breathable insulin.
Scott Benner 8:13
Also, just don't buy the Barbie doll if you don't want it, like, exactly, I'll say you weren't buying one to begin
Marley 8:18
with, exactly. You're just here to troll like, that's why you're here. You're a 45 year
Scott Benner 8:22
old guy and who seems to have a little bit of free time to talk about a Barbie doll in the middle of the day, so I'm worried about you as well.
Marley 8:30
I posted some of the comments on my Instagram story, and somebody DM me back, and she was like, I hate old grumpy women.
Scott Benner 8:40
Listen, I've been at this a really long time, like I've seen every, every iteration of person, you know, from I don't know, just plain old crazy, to just plain old, mean, plain old drunk. I've seen plain old high. I've seen thinks they're smarter than the rest of the world, everywhere, just anything you can paint a picture of there's somebody out there, you know, who's like, oh, I have a thought. I definitely have to share, yeah, especially on Facebook. Listen, my Facebook group is awesome, but we also, oh yeah, and yeah, people don't troll in your Facebook group. Well, I mean, listen, some people do, and then they get pruned out. Because that's not it's there to support people. It's not there for you to complain. We're there to learn and teach. I think it would be interesting sometimes to have conversations with the people who have been, you know, asked to leave, or, you know, we're just, we're taken out of it. And you know for sure that because we have these, like, it's not done lightly, like nobody's just, like, kicked out of the group, yeah, group of people who look in, in say, like, here's what I'm seeing, here's what I'm seeing, here's what I'm seeing, here's what I'm saying. What do you think? Like, you know, like this. And in the end, it just becomes about, like it's proselytizing at the end, like somebody just thinks that there's a thing they believe that is so important that it supersedes everything else. It needs to be spoken about all the time. And if you don't agree with them, somehow you're a monster. Yeah, and that's the thing with the Barbie doll. Like, it's like, look, it's not like, what's next? A crackhead Barbie? It's, I don't like the way the world's going. People are soft. Like, that's what they really mean. Like, just get a regular Barbie doll.
Marley 10:14
Somebody said it's this new generation. Everybody's got to be included. And I get that thought also, but it is a big deal when my one year old's at the park and a kid runs up to him, why has he got that on his leg? Why is he wearing that on his leg? And you're having to explain to a five year old that your kid has a disease that could kill him, yeah, and he has to wear this.
Scott Benner 10:35
I also, by the way, I mean, I could sit here and make the argument the other way, if you wanted me to, like, maybe there's something to their argument of, like, just a Barbie doll's a Barbie doll. It doesn't need to have other i I'm sure that if you want to go sit with a bunch of your friends at dinner or something and have a an academic conversation about whether or not Barbie should have an insulin pump or not, like, go ahead and do it. But that's not the same as just getting online and just attacking somebody for it. Or, like, yeah, exactly, like, it's just not the time and place. Yeah, it's weird. Like, you know, like you're grown and these are kids. That's what, in the end, that's what I end up thinking. Like, no matter what level of like, whatever you want to call it, I see I sit there, and I'm almost jealous. I'm like, how do they have the time for
Speaker 1 11:19
this? Yeah, exactly like you are grown. I would love to have the
Scott Benner 11:23
kind of free time that it must take for you to jump online to complain about my diabetes podcast that you don't have to listen
Marley 11:30
to. Instead, I'm trying to catch up on sleep, because I was up with my son with his low blood sugar
Scott Benner 11:35
all night. Yeah, like I, how about I got a job? Yeah, exactly. There are things in this life I detest. I have never spent a second making sure that the person knew about it. Like, you know, like, if I go to a movie and I don't like it, I we walk out in the lobby and I go, Yeah, I didn't love it. That movie sucked. Yeah, exactly, I don't then try to figure out how to contact Warner Brothers. Yeah, exactly, exactly that part. Like, I don't think I'm ever going to completely understand that part of it.
Marley 12:05
I think it just, it literally just shows that type one diabetes isn't is so unknown to basically all humans on Earth, unless you deal with it or have somebody that you're close with that deals with it.
Scott Benner 12:20
Yeah, yeah, no. I mean, usually you do have to be involved.
Marley 12:24
You have to, you have to be involved with type one somehow, because to grasp it completely, yeah, truly, you don't understand what goes into it until you see it
Scott Benner 12:33
firsthand. And Marley, and I'll tell you this too, and then you're still not going to grasp it completely, like, I have it from my perspective. I'm going to just tell you right now, like, I don't want to burst your bubble. Live with this. Yeah, I'm gonna, I don't want to burst your bubble. But my daughter just had type one since she was two, and in a few days, she's going to be 21 wow, she goes through more stuff than I'm ever going to understand, for sure. Yeah, and some of it I'm not even aware of, like, some of it I know about and can't contextualize, and some of it I'm never going to be aware of. And in fairness to everyone else out there who has a kid with type one diabetes, I've spent the last 11 years talking to people trying to figure out how they feel, so that hopefully I might understand how my daughter feels a little better. And guess what, it doesn't really help that much you can manage diabetes confidently with the powerfully simple Dexcom g7 dexcom.com/juicebox the Dexcom g7 is the CGM that my daughter is wearing. The g7 is a simple CGM system that delivers real time glucose numbers to your smartphone or smart watch. The g7 is made for all types of diabetes, type one and type two, but also people experiencing gestational diabetes. The Dexcom g7 can help you spend more time in range, which is proven to lower a 1c The more time you spend in range, the better and healthier you feel. And with the Dexcom clarity app, you can track your glucose trends, and the app will also provide you with a projected a 1c in as little as two weeks. If you're looking for clarity around your diabetes, you're looking for Dexcom, dexcom.com/juicebox when you use my link, you're supporting the podcast, dexcom.com/juicebox head over there. Now this episode is sponsored by tandem Diabetes Care, and today I'm going to tell you about tandems, newest pumping algorithm, the tandem mobi system with control iq plus technology features auto Bolus, which can cover missed meal boluses and help prevent hyperglycemia. It has a dedicated sleep activity setting and is controlled from your personal iPhone. Tandem will help you to check your benefits today through my link, tandem diabetes.com/juicebox, this is going to help you to get started with tandems, smallest pump yet that's powered by its best algorithm ever go. Control iq plus technology helps to keep blood sugars in range by predicting glucose levels 30 minutes ahead, and it adjusts insulin accordingly. You can wear the tandem mobi in a number of ways. Wear it on body with a patch like adhesive sleeve that is sold separately, clip it discreetly to your clothing or slip it into your pocket head. Now to my link, tandem diabetes.com/juicebox, to check out your benefits and get started today.
It's still her thing, very personally and even like, like, look, I don't think you're ticked. Like, I don't if somebody wants to make a Tiktok, I'm certainly not against that at all. But like, trust me, we could have a 15 minute conversation where I could tell you five things that would make you shut it off right now, you'd be like, Oh, I didn't realize how that could go. Doesn't mean it's gonna go that way. And it's, it's for you to figure out, and it's for him to figure out. And it's the same way with the podcast. Like, I'm sure I said something last year I wouldn't say this year. Yeah, exactly. You're always learning, yeah, I'm sure I said something 10 years ago that if I listened to it now, I'd be like, Oh my God. Like, that was ridiculous. I'm sure I said something three weeks ago that I'll wish I didn't have said but, but that's not how we figure things out like, like you being willing to like, point that camera at something, or me being willing to like, open up this microphone, not plan ahead, say whatever comes into my mind, knowing I might be right. I might be wrong. I might be like, my tone my I may be tone deaf on something like, all the possibilities, but like you can't look at it in the moment, like, you don't judge that five seconds, or this day, you have to step back when it's over and say, like, this was a journey that this guy, Scott, went on making a podcast. And is it a net positive? It is then great. Like, that's it. Was everything right? No, was everything perfect. No, do 20, 3040, people a day send notes that say, my life's better today than it was before I found the podcast. Yes, yeah, time for us, if I have to say something and be wrong, or Thumper through something trying to figure something out, or misspeak, or whatever the hell happened, I don't know what happens. Like, you know, like you're just talking like and in the end, it's getting people to a better place and in mass. And so I say, good for you, and you're, I guarantee you're doing the same thing.
Marley 17:29
Yeah. I mean, I feel like we get comments daily, if not that, say, like, my daughter just got diagnosed. Like, give me tips. What works for you? What over patches do you like to wear? Like, what kind of food do you like to give him? And you know, if I can help him any bit, I do not know everything. I do not know a lot. I feel like, but I'll help them, or lead them into that, diapers and diabetes Facebook group and heartbeat.
Scott Benner 17:54
Yeah, no, it's a wonderful thing. Like, you have to look back before the internet and say, all those people who had diabetes had all these same thoughts, and it began and ended with them, and unless they were lucky enough to meet a great doctor who oftentimes has to have type one if you're going to get the kind of down deep that you need, yeah, or they were maybe lucky enough to go to diabetes camp and have a good experience, because, by the way, I can point you to 10 episodes of people who went to Diabetes camp had a bad experience, so, like, everything had to go really super right for them just to meet another person or 10 more people that have type one diabetes, to not feel quite so alone. Yeah, and you're telling me now that they can pick up their phone and no matter how their brain takes something in, like, whether it's an hour long conversation between you and I, or it's a 22nd long video that somebody puts up on Tiktok like there's something out there for you to help you feel better about this and give you some information or even a direction to look into, right? There's you can't tell me that's a bad thing.
Marley 18:53
I think that's how Tiktok has saved me, because I don't know anybody that deals with being a mom of a type one diabetic toddler like no one in remotely close to me that I've ever seen this happen to so when I got on social media and I met these moms that have dealt with their child like I have a friend, her son's name is Miles, and she posts his life. And they have a diabetic alert dog. He got diagnosed at 10 months old, and anytime I need a question answered, she is there to help me. And he's now five years old, and she's dealt with it for this long now, and it just helps you feel seen, and helps you learn things from parents that have dealt with this that doctors and diabetic educators just don't understand.
Scott Benner 19:38
Yeah, there's a lot of good that's going to come out of it. And, you know, like, I said, like, even if you said something that was completely batch crazy. Like, people are smart enough to go, well, I'll ignore that part. The world's become like, a place where information is available and it's available the way you the way your brain works, even, which is even better. Like, sometimes people say to me, like, Hey, listen, I'd like. Have to listen, but I don't, I'm not good with audio, yeah? And I'll say, Well, we, you know, we have transcripts, if you think that would help. And a lot of, like, way more people, Marley, like, when Listen, when somebody told me, I need a transcript from the podcast. I was like, read it, yeah? I was like, What the hell? Like, you know, because that's not a way I would want to do it, yeah, but I heard them, and I was like, Here you go. Like, here's what I can offer you. They're AI generated transcripts. They're not perfect, but they're way better than nothing, and a lot of people read the podcast. So like, I'll tell you something that even I learned this week. I have about think I have 11 group experts who are just people in the Facebook group who help, you know, people answer questions. They'll say, like, Hey, here's an episode you might want to try, or here's a link that might help you, like, you know, trying to help people with with their questions. And this one person who is dear to me told me the other day, I don't listen to the podcast, and I'm like, what? I said, No. And she goes, No, I read it. And I was like, what? Like, I've known you for years, like, you don't listen to podcasts. She says, I don't think I've heard three episodes of it. That's so funny. Yeah? And to me, like, that's a thing that I would have never met things differently, yeah, yeah. So it's awesome. Like, and by the way, I'm not good at short form content. The way I do it. This is how I do it. Yeah, I can make a Tiktok. Nobody's gonna care about it.
Marley 21:26
I'm sure they would, honestly, because you have some stands I have,
Scott Benner 21:30
well, yeah, but I'm, I don't think I'm good at it. Is what I'm saying. Yeah, I know what you mean. Like, even if you listen to me talk about anything, like even Barbie I mean, let's be fair. I need 300 words to say what I'm gonna
Marley 21:41
say? Yeah, I feel you. I feel you totally, like, a little bit more time.
Scott Benner 21:44
Yeah, people are not, like, up for that on that platform? No, they want it quick and fast. No kidding, right? And even on YouTube, like, I don't want to, like, I mean, you should see me right now. I'm sitting here sideways. My foot's on my desk. This would not be interesting for you to watch, like, while we were talking, right? I'm good at, I'm good at the audio thing. I don't know. I just, I think there's so many different ways to reach people, and I'm grateful for anybody who's out there trying to do it. Now, for some people, it ends up becoming like a business, I know for me, like I have ads on my podcast. Like, it's certainly a thing that I do every day and spend, I mean, the better part of 1516, hours a day on sometimes, I'm wondering about you if, and you don't have to tell me, but I'm interested. Like, I think everybody thinks on Tiktok that you're all getting rich. But like, can you explain to people getting rich? Can you explain to people how it works? Because I actually think I know the truth, but I'd love it if you told somebody
Marley 22:36
so on Tiktok, I think you have to have 10,000 followers to get in the Creator rewards program, but you only get paid off new views, okay? And your videos have to be over a certain amount of time, okay, so if
Scott Benner 22:51
you somehow got to like, 3 million of your 4 million,
Marley 22:55
those viral, like those videos that go viral, yeah, you might see a few $100 you don't get, right? So you're not getting paid 1000. Like, it's just not, like, not what people think. No, yeah, and I'm not posting him to do that. Like, no, no, I don't money that we've made off tick tock. We're actually taking a huge family vacation next year for Bain. Like, we're doing this stuff for Bain. Oh, that's nice. So you're telling me that money back for Bain, yeah?
Scott Benner 23:22
So you're telling me that the money you've made from Tiktok is going to take your family on a nice vacation, yeah,
Marley 23:27
we're going on, like, this really nice vacation, a once in a lifetime opportunity for him, and it's something that he'll cherish and remember. I mean, he might not remember it because he's not even too but I'll remember it, and he'll have pictures and, you know, it's just that type of money's for him. If he gets brand deals, it's for him,
Scott Benner 23:44
right? And does that happen? Do people reach out and want to, like, do like a brand deal with you?
Marley 23:49
Yeah, he's an ambassador for a lots of different companies. Like, I don't know if you want me to say I'm on here. Honestly, he's an ambassador for, like, Spy belt. He does like some bars that, like, Wait, he loves Dino bars. He loves that zip bars. Like, they'll send him, they'll send him little snacks and spoil him. But no, we're not, like, rolling like, I still work. Yeah, no, I have a job.
Scott Benner 24:15
Yeah. I just think that people think that you're just like, oh my
Marley 24:18
god, Beatties is expensive. Like, you got to have jobs,
Scott Benner 24:22
and even if a company were to come along and offer you something for a video, like, I don't want an actual number, but we're talking about a few $100 like, right? Like, it's not going to be crazy, right, right? It's they're not. Like, hello, here is a pile of money. Here's $100,000
Marley 24:39
scam your your followers and tell them that this is awesome, like, and I'm not that type of person
Scott Benner 24:44
anyway. Yeah, no, it doesn't work that way. Is what?
Marley 24:47
Unless I love something, and that's something we use every day. No, like, I'm not gonna post that
Scott Benner 24:54
I even like one time some I said to somebody that I worked with, I was like, What are you paying those Tiktok. Years, and when they told me, I was like, Oh, I'm like, oh, okay, never mind. Yeah, I didn't understand exactly what was happening there either. I thought, like, bigger ideas and not the case.
Marley 25:09
So my goal for Bain is not necessarily to be Tiktok famous, or whatever you want to call it. It's more like, I just want, like, How People magazine put us in their magazine, and they put out an article about us, like, I just want people to realize that this is something that can happen to your toddler, and this is how we have dealt with it as a family, and this is how my son has dealt with it up until this point. And this is how, yeah, you know, my view of it is.
Scott Benner 25:37
It's exactly why I started that blog. I was like, I wonder if I could just raise more awareness around
Marley 25:41
this. Yeah, it has nothing to do with money. They could take the money away and I still would post tomorrow.
Scott Benner 25:46
Like, I have to tell you that this morning, I got a text and someone said, Could you do a one hour zoom at a diabetes camp? Like, could you zoom in for an hour and talk to people? And I always said, I said, Absolutely. I said, yes right away. Then it turns out the date overlapped with something else that I'm doing, albeit touched by type one that exact same day. And I said, Oh, I'm so sorry. I'm speaking that day already. I'm like, I don't see how I could carve out an hour from that day to do this, but I actually sat and thought about it. I thought like in the middle of one of the most busy days of my life, could I find an hour and do another thing for somebody? And I couldn't. So I said, is there another date I could do it? Yeah. She said, Well, maybe you could do it the next day. And then I thought, like, maybe I could jump on a plane and fly to that thing that night and then be there the next day for it. And by the way, that would have killed me. I'm old sleep, and I'm trying to think about how I could do it. And I could do it? And I said, Well, I could definitely zoom in the next day. And then she's like, well, we have another one in a few months. And I said, I'll definitely do that one for you. Doesn't interrupt anything. She goes, That's awesome. Thank you. Then she said, how much will we have to pay you? And I was like, for what? And she goes, like, well, is there's a speaking fee. And I was like, I mean, like, you just want me to jump on a zoom for an hour? And she goes, yeah. I'm like, I mean, I'm an adult, like, I'd just be happy to do that for you. Yeah? And it was like, really? I was like, don't get me wrong. I said, if you want to, like, dump a pile of money on me, I'll be happy to take it. I'm like, I'm not gonna tell you, No, yeah, but I'm not gonna shake $400 out of here for this. That's ridiculous. I was like, just tell me when it is and I'll make time. And I'll do it. I don't think people would think that, you know,
Marley 27:23
they wouldn't think that they wouldn't, especially the type of people that don't have your best interests or don't believe in you as a person, or what you're doing, that's the first thing, like, you're using your child's disability for money. No, I'm not, like, I never did this for money.
Scott Benner 27:39
I can't imagine that anybody could start this and think that they were going to like that. It was going to
Marley 27:44
work out again, rich off diabetes, because it ain't me. It's like Eli Lilly, you know what I mean?
Scott Benner 27:49
Well, listen, I also, I don't, I'm not crying poor. Like, I have a pretty big podcast, and I have a lot of sponsors, and I do make a living from it. Like, there's no doubt about that. Yeah, there'd be an argument to be made that if I, you know, assigned a reasonable dollar value to all the people that have been helped by it, that I'm probably not making very much as much as you should. Yeah, exactly. I don't assign a value to it. It is what it is. And by the way, it's not going to last forever, and
Marley 28:15
it's your it's a greater purpose, like, that's your testimony. That's how you're helping people.
Scott Benner 28:19
The word legacy has been used to me a couple of times in the last couple of weeks. I never really never really thought about that way, but I feel like, for sure, you have a legacy. Feel good about that. You know, also, it's social media, it's gonna just stop one day. Like, it's not a job that, like, I make a nice living, right? Like it's it's comfortable for me, and it's a thing. By comfortable, I mean, it's an amount of money that pays my bills, that allows me to save a little bit that, like, you know, makes me feel like that my time is being compensated in a way that I'm comfortable with. Like, I could go get a job and make more money, yeah, for sure, I kind of feel the same way, right, so, but I'm doing this, like this, but also, like, try to be like, a little like, understanding this could just stop, yeah? Like, what am I gonna do? You know what I mean, what am I gonna send out a resume that says, hey, I made a really popular podcast. Yeah, people are gonna go, we don't care about that. Yeah? Like, I need somebody that knows how to build this wall or knock this thing over do this thing. Like, I can't just go get another job, and, by the way, just starting another podcast that's over too. Like, even that was, like, it's a moment in time. Like, right now, you don't start a new podcast and get to where I am unless you're, like, famous already, like, yeah, like, you've built this from the ground up, and I happen to have been in a window when that was possible. Yeah, that possibility doesn't, I don't want to break people's hearts, but that possibility doesn't exist. Possibility doesn't
Marley 29:43
exist anymore. Yeah, it's hard even I feel like, not that we're tick tock famous or, you know, we're not like the OGS, but there I'll see new kids popping up on tick tock. I feel like, every day, I'm like, I don't know if they're just doing this, you know, to spread awareness or. They doing it because they see other kids on here, I don't know, like, I feel like every day there's new ones. And I'm always commenting like, Hey, welcome to Tiktok. I'm glad you're
Scott Benner 30:08
here. Yeah, now you got to just invite everybody in. And it shakes out in the end, like, there are some people who are just think there's money there, like they see, yeah,
Marley 30:16
that's the kind of thing I'm trying I'm trying to figure out not that I even care. I'm like, are you doing this because you think your child will bring in money? Because I promise you, like, I'm not rolling $10,000 a month. Like, it's just not like that.
Scott Benner 30:27
I mean, if you want a couple of free bars, remember, listen, I want to be fair. Let me be honest. Here I am looking at an absolutely free freaks of nature stick for my face, sunscreen. I got it absolutely free. AG, one sent it to me. There's almost an ounce of it in here, and I did not have to pay for it. There you go. I I'm rolling. Oh, and you know what? Hold on a second. I do think I have here. I'll open this right now. I've had this for two weeks. I haven't opened it. Omnipod sent me this. Let me see what's in here. I'm seriously opening
it right now. It is. I have five copies of the DIA Sonic, sound of strength, Marvel, comic book from Omnipod. They doing like a collab with Marvel. They did, yeah, all right, I'll give these away. You know, I was gonna sell them and buy a house, but I'll give them away. I'll give them away instead. Also, running your own business is not a lot of fun.
Marley 31:28
So I feel like that's that's more of a perk on being social media than not. Like companies like to, like, send you little thing stuff, yeah. Like, they'll send Bane like, cookies or like, I don't know clothes like they I love to dress him. It's probably not. I live in Mississippi. I don't know if you can hear my
Scott Benner 31:48
accent, but you're a delightful Marley. It's the only thing I hear. But go ahead, we put
Marley 31:53
smart like, not all parents, but I dress Bane like, in smocked outfits and cute, very expensive outfits. Like, that's just what we do in the south. And all these cute boutiques are like, I'll send Bane some clothes. I'm like, Yeah, send them some clothes. I don't want to pay $50 an outfit. Like, send it. I'd be happy to take that from you. Yeah? Like, I'll post that on tick tock. I don't care.
Scott Benner 32:16
I was at friends for life last week. I got a tandem t shirt, a Dexcom t shirt. I took one of those Lenny the lions from the Medtronic table. That was, by the way, they're kind of awesome. I think I took a teddy bear from Abbott.
Marley 32:30
You got to get everything, yeah? I also
Scott Benner 32:33
gave away two Apple Watches while I was there. So I think I'm in the net.
Marley 32:36
I'll try to go next year. Oh, it was really great.
Scott Benner 32:39
It was my first time, it was really awesome. Yeah, so, but yeah. I mean, look again, I'm not I have no trouble saying, like, there's ads on this episode I got paid for Yeah. Like, yeah, exactly. But hopefully you got something out of it that makes it feel like you know
Marley 32:56
for sure. And I'm telling you, like, whenever bang got diagnosed, anytime you ask a question, like, how am I going to do this? Or, I think the first thing I said on diabetes and diabetes was like, I still breastfeed my child. He just got diagnosed with diabetes. How do I do this? Like, the doctors don't know how I'm supposed to dose for this. What am I supposed to do? And everybody on that group was telling me what to do, and then they'd be like, you need to buy a sugar pixel. You need a you need to join the Juicebox podcast. You need to listen to these episodes. Like people like you are the go to I feel like, for most people like you need to, you need to listen to this. You need to get in this pot, this group.
Scott Benner 33:35
Yeah, I'm glad to know that. So, you know, I'll finish with this. I think this was interesting. You mentioned earlier, there was like, something on you guys in People Magazine, and people posted it inside the Facebook group. And I was like, Oh, that's awesome. And then you, you answered, and I was like, Oh, my God that ladies in here. Like, that's how it makes me feel, ladies, yeah, I'm like, oh look, because I don't know who you are. Like, you just you're somebody's mom at that point. Like, I'm not sure. And then people are like, actually, there's like, a fake Facebook group for her. So this so people started reporting you as, like, not being you. This hilarious. Oh my gosh, that I just sent you a note. I just sent you a note, right? I was like, Are
Marley 34:11
you did you're like, is this real? Yeah, I think you said, Is this real? Please don't
Scott Benner 34:15
mess with me. I don't have time. Like, are you the real person? So
Marley 34:18
whenever before Tiktok, went to that fake band thing in January or whatever, like it was gonna get banned and didn't or whatever. That's when people on Tiktok started transitioning to like Instagram, I feel like so I made an Instagram for Bain. I never used it, and it never got banned or whatever. So we just kept on posting on Tiktok, and then one day on Facebook. I was on my personal Facebook that I've literally had since elementary school. Video came up of me and vain, and it was like a video of our tiktoks with the caption, and the user was like, Marley Brandon or something, and I'm like, I didn't make a Facebook. I don't think like, Did I make a Facebook when I made Instagram? Did it like make a Facebook? Book. So I go look the page has like 30,000 followers, millions of views, and has basically all our videos from the past three months on there with all millions of views. Yeah, and it's not you, so they're rolling in the money, I'm sure, from Facebook views, honestly. So I reported it, yeah? So I report it for copyright, because, sure, apparently it's very hard to get in touch with Facebook, because I could not get in touch with anybody from Facebook, yeah, but I found out from Reddit how to like, basically get them for copyright, and had to support all this stuff with, like my Tiktok page or videos or whatever. And it finally got taken down. And then that's when I just made a Facebook for us, and I just pay for the blue check mark, because if you pay for the blue check mark, they'll take down anybody that's like frauding you or like scamming
Scott Benner 35:53
your name. Oh no kidding. I didn't realize that. So it's worth the $15 I pay so little attention to
Marley 36:01
all this stuff that was my real Facebook, like my facebook I've had since elementary in your group, and I joined your group, like, probably the week he got diagnosed. I'm not really active, like commenting, but I do read every single day, like, different things that pop on my Facebook, and somebody posted that article, and I was like, hey, that's me, and
Scott Benner 36:23
basal, that's so cool. No, I and I was happy that it was actually you. And then this is how this got set up. So anyway, I think it's great anybody who's willing to, you know, share how they feel or what they're experiencing. I think it just helps people immensely. You do have to have a thick skin, so I hope you're okay. I noticed this morning, because I get an email when, like, new stuff pops up for the podcast, and I clicked on the latest one. It's like, the Juicebox podcast is a fantastic resource for anyone living with type one diet. And it goes on, it's very lovely, right? And then I look at the next one, and the next one's like, I've seen several people in online groups recommend this podcast, and I've tried to listen a few times and I didn't get any useful information. The problem is, Oh, good. This person's listened at least three times, so they know it's too long. There's too many episodes, and frankly, the host seems to talk about himself a lot, and, God, annoying. I don't have time to sift through all that casual chatter to find the useful information. Now there's a person who they don't realize the bigger picture, which, by the way, it's cool if you don't like me, or if you think I'm annoying, or whatever, I would assume not everybody likes it. Yeah, like everybody likes everybody, or that everybody's everybody's cup of tea. But what that person didn't realize was is that the the information that they're being told about is, like the Pro Tip series, or the bold beginning series, or, like those series of you know stuff. We just put out a bunch of mental health stuff, again, with Erica and like that kind of stuff. Like, that's what people are talking about. But why does it still exist so somebody can click on it? Because I also make a podcast like, where you and I are talking like this, like this, yeah, these conversations beyond offering people who wanted community, which is obviously not what this person was looking for, and they were very brave not to use their real name in the review, but that's not what this person was looking for, but it was there. They just didn't figure it out that it was there, or look in like it has a lot of episodes. That's how it stays popular. Because it's popular is why people have the time to build out a 25 episode series for the Pro Tip series, or like like or how I'm able to put the time into making sure that like Erica can come on and talk about a bunch of different mental health issues and stuff like that or that. We you know how we can spend months culling together people's thoughts on what do I wish my doctor would have told me when I was diagnosed that we can put the Grand Round series, it has to be a viable thing so that it supports the effort that needs to go in to get the information that this person obviously wanted but couldn't find. And what they're mad at isn't me. They don't realize what they're mad at is the way podcast apps are set up. Like, yeah, I can't put it all together. Also, if they would have hung out a little longer, they would have realized that I just started a second podcast where only the series are going to run in order. Oh, that's awesome, yeah. And two weeks later, this person would have heard an ad for that and then known where to go to find it, yeah.
Marley 39:20
But instead they had to come to Facebook.
Scott Benner 39:23
Try to imagine that you've tried like people say, Hey, this is a nice podcast. Like, you see all these people saying something nice about it, and then it's not your experience in a brief section of time. And your first thought isn't, like, I wonder what I'm missing that all these other people are seeing. The first thought is, oh, well, this podcast sucks. And I'm like, okay, like, I don't know how people's minds work that way. Like, if somebody tells me over and over again, like, something's really valuable to them, and I go, look at and I go, it's not valuable to me. I don't think, Oh, the thing's not valuable. I think I don't intersect well with it, yeah.
Marley 39:59
Or, like. Maybe that episode wasn't for me. Maybe I should go to a different series.
Scott Benner 40:03
Maybe I just hit the wrong thing. There's like, yeah, I find that super interesting.
Marley 40:08
Like, if I went in to your podcast and looked up Omnipod stuff that doesn't pertain to us in our life, like, No, I'm not gonna take anything from that, yeah. Also, I'm not gonna come to Facebook and complain about that episode.
Scott Benner 40:21
I mean, that's what we talked about earlier, yeah, that's just, like, the I now have time to go complain about it. Like, just, it's not for you. Like, just go ahead. That's okay, yeah, it's awesome. Like, just don't like it and move on. Yep. I love that TV show. What's it called the bear? I sometimes I tell people, and they go, I don't like that at all. And I go, okay, yeah, it's awesome. You go watch what you like. I just thought that was funny because it literally, like, I opened up my email here as we were getting ready to get done, and you just see, like, these just lovely, like, lovely things. And then the next one's just like, this sucks. I'm like, okay,
Marley 40:58
like, I promise you it, there's more people that love it than hate it.
Scott Benner 41:02
Also, it's cool, if you think it sucks, and if you do, then it sucks. Like, that's fine. Like, I still don't
Marley 41:08
know, it's not a big deal. Yeah, the world still keeps rolling.
Scott Benner 41:11
Yeah. Anyway, it's very cool. I'm glad you did this. I lose you a ton of success with everything you're doing, and with Bane obviously, it's going to be a long, ever changing process raising a kid with type one, there's going to be things that come up that you never expected. My best advice to you would be to try to stay flexible and do your best to try to see Bain's side of it while you're going because there's a balance. I've been thinking a lot about this lately. There's a balance between healthy and harmonious. It's not always easy to make those decisions. So yeah, for sure, and they appreciate you for having me. Yeah, no, it was really lovely. I love that you said. I don't know if you I'm sorry
Marley 41:51
for my soup, sorry for my dog, what you're sorry for? What my super country accent? I'm sure I probably sound like a hick, but I promise you, I'm not.
Scott Benner 41:59
No, not at all. It's, it was, it's, it's delightful. I thought it was lovely. I was gonna say to you, I appreciate you saying. I don't know if you can hear my accent. That was maybe the funniest
Marley 42:08
thing. You don't realize how contour you sound until you hear yourself. You're like, oh my goodness, I sound like
Scott Benner 42:15
that. I don't know how northeast I sound until somebody points. You just
Marley 42:19
sound like a very like well spoken American, do I
Scott Benner 42:23
really, that's crazy? Yeah, to me, you do well you are country. Then if you think I'm well spoken, but I'm country, I know I am. There's nothing wrong with that. Qualms with where you live, it would be the humidity, not your accent.
Marley 42:35
Yeah, the humidity is horror. Like, I don't know what I'm gonna do with this heat and bane's blood
Scott Benner 42:40
sugars, they've been horrible. Yeah, no, I couldn't live like that. The humidity right now is 80% Oh, no, no, no, no. I would, I would, I would miss 87 degrees outside. I would have a podcast where I just complained about the humidity.
Marley 42:53
So it's horrible. And Bane went from like a normal blood sugar to 40 double arrows down.
Scott Benner 43:01
Wow, wow. Yeah. Because what happens? It gets real hot and then overheat. Yeah, just people.
Marley 43:06
People online keep telling me, when they go outside in the heat, they go up, but he tanks.
Scott Benner 43:11
It's funny how, it's funny how, like, you make me think about, some people say that about a shower, like, I get in the shower and my blood sugar goes right up. And then other people say, I get in the shower, my blood sugar tanks.
Marley 43:23
Yeah, you just never, I guess it just depends on the person. But he always tanks,
Scott Benner 43:27
yeah. You know, you could break down every little bit of this and have like, long conversations about it. Like, I've heard people say, get, you know, you heat up and like, you're, I don't even I'm, this is not gonna be technical, but like, you know, your vessels kind of, like, expand, and then maybe that helps, like, move the
Marley 43:42
insulin more. I've heard that too, like, it makes your insulin hit harder or something.
Scott Benner 43:47
I've also heard people say, like, I just get in the shower and I relax. My my anxiety goes away, my stress goes away, and I think that I have a bunch of insulin that's like fighting with the anxiety, it goes away. I've heard people say, I get in the shower and my body heats up and my blood sugar goes up. It goes down. Like, who the I mean, you know, good luck. It ain't easy.
Marley 44:03
That's part of like, What sense does diabetes ever makes? It doesn't make any sense ever.
Scott Benner 44:09
No, no kidding. Okay, all right. Well, Marley, this was awesome. I appreciate you doing this. Thank you for taking the time of people want to check you out on Tiktok. It's m, A R, L, E, E, B, R, a n, d o, n, that right, yep, yep, okay, hold on one second for me, please. Okay.
Dexcom sponsored this episode of The Juicebox podcast. Learn more about the Dexcom g7 at my link, dexcom.com/juicebox dexcom.com/juicebox, did you know that skin grip has donated over $100,000 in scholarships to help people with diabetes? The people at skin grip, they know what it's like to live with type one diabetes. They know what it's like when your devices fall off at the absolute worst. Time, and they're here to help. Skin grip.com/juicebox save 20% off your first order when you use my link. That's what you get for being a Juicebox podcast listener. The podcast you just enjoyed was sponsored by tandem diabetes care. Learn more about tandems, newest automated insulin delivery system, tandem Moby with control iq plus technology at tandem diabetes.com/juicebox. There are links in the show notes and links at Juicebox podcast.com.
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