Scott Benner 1/12/22 Scott Benner 1/12/22

#611 Diagnosed at 73

Nancy was diagnosed with type 1 diabetes at age 73.

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Scott Benner 0:00
Hello friends, and welcome to episode 611 of the Juicebox Podcast.

Today on your favorite podcast, I will be speaking with Nancy, who was diagnosed with type one diabetes at the age of 73. Nancy is now 75. And she's coming on the show to tell us her story. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your healthcare plan, or becoming bold with insulin. Are you looking for a simple and easy way to help people with type one diabetes? Well, if you are, you're in luck. By going to the T one D exchange and filling out their survey, you'll be helping people with type one. Now you have to be a US resident who is either a type one or the caregiver of a type one. But after that, go to T one D exchange.org. Forward slash juicebox fill out the survey does not take long at all. It's easy to do from your sofa, you know your cell phone, your tablet, very, very easy. And every time that someone completes the survey, not only does it help people with type one diabetes, but it helps the Juicebox Podcast T one D exchange.org forward slash juicebox

this episode of The Juicebox Podcast is sponsored by the Contour Next One blood glucose meter. Use the blood glucose meter that my daughter does. Contour Next One, find out more at contour next one.com forward slash juicebox

Nancy 1:47
My name is Nancy. And I'm uh I'm I know that the reason I contacted you was because I was diagnosed so late in life. I was 73 when I was diagnosed. So I'm Nancy, I'm a diabetic.

Scott Benner 2:03
This year you aging backwards because I'm fairly I can see Nancy and she can't see me but you're not over 73 Right. Oh, I'm

Nancy 2:10
almost 75 Good for you. But thank you and I you know, and that kind of works in my on my behalf. At this point in my life.

Scott Benner 2:21
You feel you feel younger? Or do you just are you just lucky and you look young?

Nancy 2:30
Interesting question. I think I've I feel fairly young. Just for background, my parents are both still living 101 and 102. So yeah. So, you know, I thought that was kind of that's kind of interesting. And I'm the first one, you know, like in my immediate family with with diabetes. So they're, you know, generally healthy, you know, heart problems, no chronic illnesses. Your brother's doing the same. I mean, there. We all excuse me, we've all had cancer except my sister. Okay, so that was kind of interesting. And there's a reason I brought that up. But that's kind of an interesting fact, which I never even considered, you know, I never even thought about it. But I was diagnosed with melanoma about about five years ago, and it metastasized. And I had immunotherapy treatments, which I never had a day of tiredness or anything. I mean, I felt good the whole time. And even actually thought, or wondered, you know, is this just a farce? What's going on with me, but I've had side effects from the immunotherapy. So that's where I got the diabetes.

Scott Benner 3:53
Oh, okay. Hold on a second. All right, this will be fun. There's plenty to pick through here. So you have a mother and a father who are like 1000 years old and they're still alive and how many brothers and sisters

Nancy 4:02
have a brother and a sister. Okay.

Scott Benner 4:04
So there's three of you. Each of the five of you have had cancer. Except my sister, your sister different kinds of cancer?

Nancy 4:13
Yes, yes. Breast cancer, prostate cancer, testicular cancer and metastatic. Melanoma.

Scott Benner 4:20
Wow. Which one? Did your father have? prostate, and he's doing well.

Nancy 4:27
And he's okay. I mean, you know, it's kind of like, I don't know what to say or not say, but it's kind of like he says, you know, there's a certain point when you wonder why you're still here. And that was probably about four years ago, four or five years ago. He

Scott Benner 4:43
said, how old he is. 102 Wow, no kidding. Yeah, I guess when you're I just turned 50 yesterday. And happy birthday. Thank you very much. And I was laying in bed at the end of my my 50th birthday. I'm feeling a little sad about being 50. And I said to my wife, the strangest thing is, is that here in the dark with my eyes closed, I can't tell how old I am. You know, like, I don't know, I said, I'll get up and look in a mirror. And I won't look the way I remembered. Or, you know, I'll, I'll my son in law asked me to throw with him and my shoulder won't handle it for more than, like, 20 minutes or so. And, you know, that kind of stuff, then, you know, gives you more of a perspective of where you're at. But you'll always think like, oh, I'm 50 I have so much time left. But I wonder what the difference is between time and really usable time, like any way you want to use it time. And that's probably probably how your dad feels a little bit like, Yeah, I'm here. But you know, there's stuff I want to do, and I can't do it anymore. That's crazy. Okay, so

Nancy 5:51
are you. Yeah. Can I Can I please Kevin off that for a second. Because when I when I was diagnosed with melanoma, and you know, I'm sure everybody goes through this. When you have a, you know, death threat, so to speak. I really did soul search, you know, some soul searching and looked at my life. And I had done a lot of things. In fact, at the end of the treatment and everything, I had done a lot of my bucket list, a lot of things that I had wanted to do, and I started thinking, Okay, now what, you know, now what, well, the now what was diabetes, but irregardless of that, it totally changed the way I look at life. And, and in a way, I mean, I'm old, I'm old, you know, in a way, I'm old. I mean, a lot of things that I didn't do as a younger person. I don't know that I could, would or should do them now. So yeah, kind of. I did a lot of reflecting on that and looking at it. And you know, you do at a certain point, you you go, oh, shoot, I can't go back to high school. Or, you know, whatever it might be. Yeah. How?

Scott Benner 7:06
I'm gonna get back to that later. But how old were you when you found out you had cancer?

Nancy 7:12
I think I was 69.

Scott Benner 7:18
Okay. And I think I

Nancy 7:20
was one month away from my 77/70 birthday.

Scott Benner 7:27
Yeah, at 70 years old. You just think I beat it? Like, nothing's gonna happen. Like, what the thing that happens next is, is how I die. Do you start having thoughts like that? I never had

Nancy 7:36
those thoughts. Actually, the crazy thing is, I never even had a thought that I would have cancer. I mean, the same thing with diabetes. I never, it never entered my mind.

Scott Benner 7:47
Yeah. Well, how long did the treatment for the cancer take?

Nancy 7:54
I had a supposedly preventative measure. At the end of the first, well, no. Let's see. At the end of the second year, so I didn't it didn't go anywhere after that, you know, for a while. And then five months later, it metastasized. And so those four treatments really didn't help. You know, apparently, or maybe they did, who knows. But anyway, and then I had, I didn't have a lot of treatments. I was trying to think that I think that through it's funny how I kind of forget things when when they're behind me. But I know I had four treatments of the same immunotherapy that I had before mixed with another one. And then after that, I had the other one. I think once a month for the rest of that year, so I think I think that treatment was about one year

Scott Benner 8:53
or use and how do you think of yourself now in relationship to cancer?

Nancy 9:02
I don't, I never I never saw it as a fight. Okay. I saw it as something that I you know, maybe maybe I didn't know, I don't know if I did something to do to do with it along with, you know, getting that or not, I don't know that. But I, you know, I'm not like the pink ribbon person that runs around and says, you know, I don't know. It's just something that happened. Yes. Just something that happened. I dealt, I dealt with it. And you know, my whole family is kind of that way. I mean, they never really talked about their cancer as much as I talked about my cancer.

Scott Benner 9:46
Well, okay, so are you in remission now? Like, how do they categorize it?

Nancy 9:52
I'm not sure if I am but I think this next appointment or shortly, he's gonna let me Go cuz I, I still see my doctor, the oncologist every three months. Now I only see the dermatologist every six months. Gotcha. You know, I stopped seeing the surgeon a year and a half ago. You know, so I think. Yeah, I think I don't know, you know, he said, if you get it again, the treatment will probably work again. And that's why they wanted to stop it as soon as they did, but yeah,

Scott Benner 10:27
so what about? So when do you get diabetes in this whole mess? Is it? Yeah, right.

Nancy 10:35
Exactly. So it was afterwards. I mean, I've been reading some articles just recently about it. And a lot of people get it right during their treatment. But my treatment was pretty short a year. And then I believe it was because I got it in 2019. At the October so it might have been three years after the melanoma, so maybe a year after the treatments were stopped.

Scott Benner 11:04
And then what was your first indication of diabetes?

Nancy 11:09
Oh, thank you cancer, right. I get was getting CT scans every three months. Okay. And so I went to get a CT scan. And my blood sugar because I always said to have to take your blood sugar, which I didn't even remember it being taken before. But apparently they always take it and she said, Are you diabetic? And I go, No, I don't think so. And she said, Well, your blood sugar is 298. And I just about dropped, because 15 years before actually 14 years before my son had been diagnosed with type one diabetes, at what age? He was 35. And his was not as easy as mine. You know, mine was just kind of like, okay, it's 298 I go home call my doctor. I have a I have Hashimotos Siberian Sienna endocrinologist every six months anyways, I go home color, tell her what's going on she, you know, suggest I go get a glucometer and start testing my blood sugar. And then I start watching videos and went back two days later, and my blood sugar was 202 I think she said I'm sorry, we can't do the test today. And I go, Well, gosh, you know, sunken in the seat? thinking oh, my gosh, do I really have diabetes? And then she said, you know, would you like me to take it again? And I said, Yeah, that's a good idea takes it didn't even entered my mind that she could take it again. Now it might be different. But she took it again. And it was 198. And so they did the test.

Scott Benner 13:06
They just didn't want to take it over. 200 Yes, Jesus, that's ridiculous. Those those meters can be off by as much as like 15% Some of them Oh, give me this real quick. Your son late in life, Baby Lips, baby. Second marriage, baby. We just waited till you had old till you were older to have kids? What was the thing?

Nancy 13:30
Yeah, I mean, we were young, when we had kids, my my daughter was, you know, I'm 21 years older than her and 24. Older, you know, 24 years older than my son. So it was just, you know, at in those years in my life, you just do what the next thing is to do. And now let's have kids. So,

Scott Benner 13:53
so you went to school, and then you found the guy and you're like, Well, it's time to make a baby and find a place to live.

Nancy 14:00
Well, like I went to school, I think the guy found me. And then I quit school so he could finish school. Yeah, boys took me a long, long time to go, you know, get back to school and did you go back? I eventually got a degree in accounting when I was like 38 And then we got divorced. And then I got my master's in social work. When I was 57. Worked. Yeah, worked for 10 years and then just retired, you know, a couple few years ago.

Scott Benner 14:43
That's pretty cool. Okay, so you're so your son has had type one diabetes for a while but as an adult, so what do you really know about it? Before you

Nancy 14:53
know what exactly that that was shocking to me because he was 30 Five at the time. And so he was an adult, and he happened to be living with me at the time. So I'm just going through the experience with him was just horrible. And then, you know, kind of watching him. I mean, he's amazing in a way because he never even gave himself a shot when he was in the hospital, and he was there for 29 days, 27 days, I think 27 days. I mean, in retrospect, I say, How did you get away with that? He said, Well, every time they'd come in and want to teach me I'd let him teach me but I wouldn't ever do it. Okay, whatever.

Scott Benner 15:41
Tell me a second. How many years ago was he diagnosed? 1515 years? Yes. And he got he was in the hospital for a month.

Nancy 15:49
He was in the hospital for a month. I mean, he was dead. Oh, I think he was yeah, he was dead. He was on life support. For about three days. He was on dialysis. He was on. What else? Do you know? He was on a breathing machine ventilator?

Scott Benner 16:06
Yeah. Wow. He really almost died from it, then they Yes. Is that how they caught it? Because he fell over?

Nancy 16:13
No, no, he No. I mean, it was like he went, he went to a doctor fine. I mean, he never he didn't have insurance or anything. So he he had told me for not very long, a little while short, while like a couple of days, you know, he had its downward stomach was bothering him. And it had been bothering him. And he was going to finally go to the doctor. So I go, okay. You know, so he goes to the doctor, I think it was on a Thursday, and calls me. And I'm at work. And he says, Mom, the doctor just gave me some insulin and I'm, I need to go to the hospital. And I'm thinking what, this is weird, you know, what's going on? So I, I said, just, I'll come and get you. And I'll drive you to the hospital. He said, I think I can make it. It's only you know, a couple blocks away. I don't know. Just wait. So I was like, 20 minutes away. I flew out of there, went over and picked him up. And, you know, couldn't find him. I didn't know where he was. But when I eventually found him, we drove to the hospital, which is further than I thought. And as he was walking in the hospital door, and I was parking the car, I saw him and he was just dragging. I mean, you've probably seen that before just dragging their foot one after the other, you know, skinny, I mean, he he was probably 175 and went down to 140 I think, okay, but we didn't notice it. You know, I remember telling him a few days before, gosh, you look so good. You know, cuz he was really thin. He looked really, really good. Yeah, so then he, you know, he went in the hospital, and I parked the car and went in with him. And then they took him back, almost, you know, pretty immediately, and I didn't know what to do. And he was 35. And he, you know, he'd never been in the hospital before. So I kind of stood around for a while and then thought, You know what, I don't, I can't go in with him at this point. And so I went home, and he never called me and I was like, normally he would call me, you know, and I was like, Oh my gosh, oh, well, my parents, you know, my family is no news is good news. So don't worry about it. He's probably fine. And then finally, the next day, he didn't call me yet. And I was like, what? So I finally called around noon. And the nurse answered the phone and she goes, you know, go house, my son and she goes, Oh, he's, you know, he's doing. He's very sick. She goes, he's very sick. But she's in good care. I go, Well, should I come home with her? You know, I mean, he's a 35 year old man, you know, why hadn't he called me? I didn't know. I was totally confused. And she goes, No, you don't know just finish your work and do what you need to do. And then you know, when he'll be fine. I'd be like, okay. But I, when we hung up, I was like, No, this is so I grabbed everything and ran over there to the hospital, and I ran in there. And he was just laying there by him by himself alone. You know, with this nurse that he told me she's so mean. You know, she whatever she does, you know, and she's just, you know, if I don't need some theme, she grabs it away from me and you know, she he said, I'm so glad you're here. I go. Oh my gosh, I'm so glad I

Scott Benner 20:00
Here's, that's insane. Oh my gosh, do you know what his blood sugar was? When they took him in?

Nancy 20:06
He was 500 and something. Wow. 545. And I don't know what his a one C was at that time, you know, we've never really looked at the records. But yeah, and then he was kind of hallucinating at night. You know, it was pretty horrible. And I'm

Scott Benner 20:24
sorry. Now, at what point do you do you start making the light connection? That is? Because you told me in your note that he had a cousin who was type one, since a little kid did that. take a while to put those two things together?

Nancy 20:38
A long while I never thought about it until probably maybe even years later. You know, or if I did, it wasn't prominent in my mind, you know, because I know when when they've gotten together and they they get together very seldom, because he lives. You know, she lives one place. We live somewhere else. So we don't really see him that often. But there's been a couple of times then yeah, they're like, sister, brother. You know, they're hooked into each other and talking, talking, talking. And I thought, Oh, that's good. You know, he has someone else to talk to about diabetes, too.

Scott Benner 21:11
Yeah. Well, now he's got you. So when you're when you're diagnosed at your age, and you're, uh, you know, you seem like you're in shape fit person, like, do they look at you? And what do they tell you when you when they realize your blood sugar's that high? What was the what was the call after they finally ran the test?

Nancy 21:34
When they ran the test and saw the C peptide and everything? She came in to me and she said, you know, and I'm trying to think exactly how it went. But you know, she said, Yep, you're type one. We're not sure if you're, you know, it could be what's in the fixed blank, what li da was and type 1.5? And I you know, of course I don't I still don't know that much about it. But I just figure it's type one. I'm insulin dependent out that way, explain it. And they did the test for the C peptide and the antibodies, you know, about a week later, and I had no antibodies. And she said, You know, I think you're I think this is from the immunotherapy. And so when I went to the doctor, the oncologist I, I asked him, you know, I said, you know, I now have diabetes. And I think it's, I mean, do you think it could possibly be from the immunotherapy? And he said, No, no way, it's genetic predisposition. I go, okay. I go back to my doctor. And she says, No, we're, you know, we think it's the immunotherapy, but don't argue about it. So that was like, what, almost two years ago, and I just recently have found a couple of articles connecting the two. Because I just, you know, that was another reason why I kind of wanted to be on the program was because it's so unique. And yet, I'm sure there's other people out there that are, you know, around my age that have had immunotherapy or are going to, and maybe they're going to fall into this very small percentage, maybe it's point oh, five, I mean, it could be really tiny, of people that could end up with diabetes.

Scott Benner 23:24
Well, so I wonder if, if both of those doctors aren't right. Meaning that I mean, if your son has type one, his cousin has type one. And your note says that once you were diagnosed, your mother started telling you that, that your grandmother had type one diabetes in the 20s. Is that right? Is that right?

Nancy 23:44
Yeah. Or maybe type two, maybe she has her her food. But I don't know how she could have lived that long. She was young. My mom was five years old. So her grandmother was probably at least close to 50. Right. And insulin was only discovered in 1919. The year my mom was born. Right? So I think it had to be type two, which the other crazy thing, since you brought that up was that I was type. Borderline, I've been borderline diabetic for at least 15 years. And I always managed it with exercise and diet. You know, I would go to the doctor and I you know, you're getting closer to 6.5 You know, and I go home and exercise or, you know, cut out the junk food that I was eating and it would always drop down. I mean, it was you know, I'd always go down in that range.

Scott Benner 24:42
That is interesting. So you're trending towards type two. But then you get this immunotherapy and then boom, type one. And your son has type one, his cousin has type one, we're not sure about the grandmother. So I mean Could you have been living your whole life with the markers for type one diabetes, and it took this therapy and cancer to kind of throw your immune system out of whack and kind of your body takes takes a shot of itself instead of the illness? Right? And you get diabetes? Like, that's completely possible. I don't know that you're ever gonna really No, I don't. I mean, listen, I'm not a scientist. But I don't think there's something that exists that we just give people and they magically get diabetes, I think you have the markers for it, and something pushes you over the edge. But it's fascinating that you made it this long without had you not been very sick throughout your entire life.

Nancy 25:42
Ah, you know, the one thing that when I go to these health, you know, especially naturopath or whatever, the one thing I had, which they always bring up is mononucleosis as a, you know, in high school, and I have the Epstein Barr. So I haven't pursued what that actually means. But I think that is more related to the cancer. But I'm also wondering if it might, might be related to auto immune? I don't know,

Scott Benner 26:15
does it? Does it fill your thoughts? Do you? Do you feel like you need to try to figure it out? Or do you not think about it too often?

Nancy 26:23
I don't think about it as much as I used to. But I, I did write to these two research guys this week about you know, are there what are the markers if the if it's genetic, because I don't have the antibodies? Well, at least three of them. I don't have so I'm not sure about the others, but I have Hashimotos you know, I have from the cancer treatments, I have something called vitiligo. So my skin is all different color, different colors. So I'm really concerned about anything to do with my immune system, because it obviously acts in a strange way.

Scott Benner 27:02
Well, I'm testing my memory here. But so first of all, the one I definitely know for certain is Hashimotos is an autoimmune disease. Type one type one's autoimmune. I think vitiligo is two. I'm looking right. Yes, it is. It is right. So you just have. So I guess, Nancy, there's two ways to think about this. How long? How long have you been fighting with the Hashimotos? Has that been lifelong? Or

Nancy 27:29
I at 50, I figured out that I had it or my doctor figured out that I had it when I was 1525 years.

Scott Benner 27:36
Did you struggle prior to that? Were you tired?

Nancy 27:40
Tired? Yeah, just tired? Yeah.

Scott Benner 27:42
Okay. So do you feel less tired now that you take your, I guess Synthroid or whatever you're taking?

Nancy 27:48
Probably, you know, if I skip it, I can sometimes, you know, two days later, I might notice Oh, shoot, I you know, I get that medication forgetting it. Yeah. So, but I've never had, you know, I mean, cuz I listened to your podcast a lot. And I listened, especially to the autoimmune stuff, and the dot, you know, your doctor and all that stuff. And, and I don't have any of the I've never had, or else I don't notice, you know, the typical symptoms of like, a really bad thyroid, right? Even though even though mine is a sponge now, you know, the last time they looked at it with a ultrasound, and he said, Oh, yeah, it's spongy. You know, I don't think it's doing any good for you at all.

Scott Benner 28:36
Probably not doing anything for you. Right, my pancreas isn't helping much either. So exactly what else can go wrong? Yeah, delightful. But but but the reason I bring it up is I guess there's different ways to look at this. Like when you're describing this, there's part of me that thinks you made it pretty far without all this stuff happening. It's kind of nice. I know. That's a weird way to think of it maybe. But you could have gotten diabetes when you were 20. Or you don't I mean, your your thyroid could be really screwing with you or something like that. Like, it's not that I'm saying that your life is less valuable in your 70s. I'm certainly not saying that. But I would. From the outsider's perspective perspective, I would think well Wow, at least it waited this long. Like now to you. It doesn't matter to your life and it sucks, I imagine.

Nancy 29:26
No, no, I agree with you. I taught Yeah, I totally agree with you. The only thing is that as an older person, you know, I'm 75 I mean, a lot of people don't even live to be 75 And I think about the poor people that whose mind isn't as alert as mine used to be before I got overwhelmed with all this stuff. But you know if to learn what there is to know about diabetes to manage it in a good manner. Takes a lot of F, you know, takes a lot of effort. Yeah. And I, you know, that was I really, you know, I was really grateful that it, you know, it seems like my brain is kind of losing it lately but whatever, you know, but yeah, so I agree with you, you know, I think I went this far but you know, have to learn so much. I mean, look at you have over 500 podcasts.

Scott Benner 30:23
I mean, it's a lot. And I listen, there's there can be no doubt, like my mom's 78. And, you know, the things that she can talk about quickly and sharply go away a little by little over the last Yeah, yeah. You know, the last number of years. Politics still, though, she's like rock solid. Her thoughts about politics are like, that's the one thing she's retained, and she can sit and BoomBoom will be sometimes you start talking about things. And she sort of doesn't see the through lines sometimes right away, or you have to explain something once or twice, then she's like, oh, yeah, I see what you're saying. Or she'll forget. And I don't know what she would do if she had a serious illness where she had to control a medication like insulin. And, you know, the other day I had someone ask, someone asked, my wife heard about that knew about the podcast, you know, what do you do? If your visions not so good? What do you do if your dexterity goes away? Like, you know, how do you use these, this technology? If you can't, can't manage it with your hands? And I would imagine all that stuff is right in the front of your mind. Now.

Nancy 31:33
You know, one of the things that I really love about you, but that I see sometimes slips away from me is common sense. You know, is just, but I'll tell you like your your mother loves politics. Well, guess what, I love diabetes, because it has changed my life. And I kind of mean it in a tongue in cheek kind of way, you know, but thank God for the COVID because everybody was home. And so was I, you know, and I learned a lot I learned a lot. So, yeah, it in some way, you know, it's given me a new step this somewhere, you know, it's given me a new focus on my life, one that I never thought I'd have. Sure, you know, but also one that I, you know, it's good, I'm eating so much better than I ever have before in my life. I, you know, I, the doc, you know, some of my doctors are seeing a change in, you know, my makeup. My, you know, and, and all that is because of diabetes. So, yeah, so

Scott Benner 32:48
this time, this COVID time gave you the kind of the the pause to be able to really think about this whole thing and try to put it into perspective and put ideas into practice. Right? Yeah. What did you just say that I want to follow up on? Oh, common sense. Can you give me some examples of how you feel that sometimes there, it's not there for you when you need it?

You know, speaking of common sense, common sense might tell you that when you get type one diabetes, or you start using insulin, that your doctor would give you the best blood glucose meter that was available. But that's not how that works at all. What happens is the doctor gives you the meter that they know about, or the one that the practice prescribes, or, or maybe they're in a rut, and they've just been prescribing the same meter for so long, that they haven't stopped to think that newer, better meters exist. I've thought about that. And I found one for my daughter. And then after that, I was able to talk them into becoming advertisers on the podcast. So I'd like to tell you today about the Contour Next One blood glucose meter, it is a very simple device. It is easy to carry. It has a super bright light and easy to read screen, and second chance test trips. But most importantly, what the Contour Next One blood glucose meter is, it's accurate. You're over there trying as hard as you can making decisions with insulin and carbs. And the very least that you could expect while you're making those decisions is an accurate response from your blood glucose meter. The Contour Next One is that meter, it is the most accurate and easy to use meter that I've ever held. And I know in a world where people have glucose monitors now and you know using Dexcom and libre or whatever you got there, you think I don't need a meter. But first of all, yes, you do. And secondly, you're going to use one once in a while even if you don't use it that often. And again, you should be expecting accurate results. The Contour Next One blood glucose meter is easy to carry fits in your pocket. The bag that you put your diabetes supplies in, and it has a super bright light. For nighttime viewing the screens, absolutely legible block letters, I can see it every I never once looked at it like what does that say nobody got fancy with the font or anything like that. It's simple to see and interpret. And the test strips if you get a little blood on but not enough, and you go back to get more, those test strips support, Second Chance testing. So no more error codes, or the strip just failing. Contour next one.com forward slash Juicebox. Podcast things not expensive, it actually could be less in cash than you're paying right now through your insurance company. For the meter you have now isn't that crazy? You may be paying more now for a substandard meter than you would with a Contour. Next One. Just take a few minutes to find out you deserve it. It's easy to accomplish Contour Next One comm forward slash juicebox.

Nancy 36:08
What I believe is that common sense is kind of a spiritual quality, you know, it kind of it kind of surfaces if we allow it. But I think sometimes when we get anxious or you know, wound up or have a low like I had last night that won't go away, and you're thinking what the heck, I only took three units, I had 105 carbs, this doesn't make sense. You know, I'm eating and eating and eating. And of course, then, you know, that was you know, when you're 40 and it's still sitting there. But you know, so you don't have you know, it's hard to sit there and wait, you know, common sense says just wait another few minutes and it looks circling up. But yeah,

Scott Benner 36:55
but she can't because it's for it's for is it? Are you do you live by yourself?

Nancy 36:59
I live by myself? Yes.

Scott Benner 37:01
Is it a fear? Is it just like, What? What drives that then?

Nancy 37:07
I mean, the 40? The 40 does that. But you know, the 60 doesn't do it so much. But when I it's 60 and going down and then 50 and going down? Yeah. And I think it's I mean, I don't think I would pass out. But I'm alone. Yeah. You know, I'm alone. I mean, my daughter lives not that far. But right now she's in New York. So she's not stuck downstream. Yeah, she's not across the street. And I you know, I'll take her off of my follow app, continually. Because she'll call me and I'm just sitting there eating, you know, so there's no reason for her to call. So if I can see her going down, you know, sometimes I'll take her, take her off of it. But

Scott Benner 37:53
Nancy, you're telling me that the exact thing this thing is made for when you need it the most you're taking it away so that you won't, so I want to know why to not bother her or to not feel like

Nancy 38:04
you're not bother her like 11 o'clock 12 o'clock at night, you know, she has to work the next day. And I know that I'm going to come back up at 40 No, I mean, then I'm okay if someone calls. But 65 No, I'm not okay, if someone calls. And I think hers is I think hers is set at 55. But I rarely, I rarely get to 55. But, you know, occasionally I don't know what happened last night where I only gave myself three units.

Scott Benner 38:37
So when it happens, let her get woken up. It's fine. She wants to do that. You I tell you, I It's funny. This has never happened before while making this podcast, but I just had a feeling like you just said something that mimics a conversation I have to have with my mother all the time. And it's frustrating. I almost found myself getting frustrated at human use, which is what people want to help. You're not taking advantage of them. They're you're not wasting their time or bothering them that your your daughter wants to do this. And so to take it from her is is I think it's kind of sucks because she's worried about you. And now suddenly she can't see it. So it's not like she's gonna let it go. She's gonna call you anyway so yeah, I don't I know what you're trying to do. And I appreciate it. Like not to be a burden. Like that's the vibe right? You don't want to

Nancy 39:32
be Oh, no, no, no, no, no, no, no, no, no, no, just don't want to bother. No, this is the thing. If if she if she caught if she ever asked me anything about my diabetes, not anything but you know if she ever asked me how I'm doing or, you know, how's it going or, or if I call if she called me and if she didn't Tell me that she didn't like the alarms going off in the middle of the night. It might be a different story. But she's told me, I don't like those alarms going off in the middle of the night. Why?

Scott Benner 40:09
See? She's not as altruistic as I was thinking. I gotcha.

Nancy 40:13
Yeah. All right. You know, it was my idea to have her follow me.

Scott Benner 40:18
You're like, listen, I saved my life. And she's like, not if it's gonna wake me up. Exactly. She's got everything she needs out of you, I guess by now. Wow, this is a file. How do you do? You know, you

Nancy 40:30
probably got, she probably got that out of me too, though.

Scott Benner 40:34
Raise this kid. And now she doesn't want to help save your life at the end. Goddamnit. Oh, that's something. Well, how do you find day to day management? I mean, I guess that's not my first question. Let my first question be. How do you find a podcast when you're in your 70s?

Nancy 40:52
So I was in the mastering diabetes Program. And I love that. And that might be another conversation. But there was a girl in there that I was texting back and forth. And we were talking about insulin and trying to get you know, less rise in our insulin, you know, and are in our bread, blood sugar levels. And she, she recommended I listened to you. Well, your name, you know, your podcast had popped up several times before, but I thought this is for kids. I don't, I don't really want. I'm not a kid. I don't really want to talk about kids anymore. You know, whatever. Although I, I have to say I enjoy your interviews with the kids as one of the best ones that I like. But anyway, so when she sent that to me, I listened to it. And my original thinking was this is this is this is this is a guy. This is a real guy. He's spontaneous. He's casual. He, he's goofy. Sometimes he's. Anyway, I felt like, you know, when you just kind of sit, You're finally home. I felt like I was home.

Scott Benner 42:13
That's really lovely. Thank you. You're catching me on me. You're catching me a day after so many people sent me well wishes for my birthday that any? Any nice thing you say to me, Nancy right now could make me cry. So please be gentle. Okay, that was really nice of you to say thank you.

Nancy 42:30
But I want you, you know, I want you to know that. And I. And I thought, you know, I think I said maybe even after the very first time I heard you I might that might have been when I sent the very first email because I thought you know what? I bet there's not that many people that are my age that just got diagnosed and are having to deal with it.

Scott Benner 42:47
Yeah. Now it's it's not completely uncommon, but it's fairly uncommon. If you're part of a handful of people, over 60 I think that I've that I've spoken to who's been diagnosed with type one. But that I mean, you just had a confluence of bad health events at the end. I bet you without the cancer, you might have made it without the diabetes. Hmm. Yeah, you feel I think so. Yeah. I'm trying to sell my question is, so you find the podcast, and it all makes sense to you? And you start doing it, like, how do you how do you manage right now?

Nancy 43:31
Well, I'm on MDI, but I have a pump, it's gonna get trained on in a couple of weeks. And that's another chaos but anyway,

Scott Benner 43:42
worried about it, or it's just hard to get it set up?

Nancy 43:45
I don't know. It's, it's gonna be hard to get set up. I, you know, because I haven't been trained on it yet. But I said the thing I'll tell you why I've wanted a pump for quite some time. Mastering diabetes really emphasizes MDI, because they think you have more control. For the, for the way that you eat, when you eat. It's whole food plant based low fat, you get very insulin sensitive. And so So anyway, I'm very insulin sensitive. So, when I was I was on to Seba and trying to get it to stay be keep me stable. But I could tell when it I called it kick in, I could tell when it kicks in, because then I would I would drop and I could tell when it's wearing off because then I could I was rising. So I, you know, I kept thinking I would like to get a pump, but then it kind of freaked me out because I know it's gonna be probably two weeks at least, of not knowing if things are working or not. And, you know, while I'm saying this, I want to there's one thing you said that that really stuck out To me, one of the early podcasts that I listened to, and I think this applies to a lot of things that I do, but it said, within, you know, with insulin, what you said was something to the effect that if things aren't working the way you think they should, then there's something else going on.

Scott Benner 45:22
Yeah, I understand. So the way I feel about it is that once you have your settings, right, you know what you're doing. If something randomly, the way I think of it is if if the insulin doesn't do what I expect it to do, I don't think that there's like a magic fairy that's come in and messed up my diabetes like situation with my daughter, I think something's wrong. Like it's wrong. Yeah, this do what it was supposed to do. I miscounted carbs. I didn't in take into account fat and protein the way I should have this sites old. Like that's the stuff you start, like, like, I roll through my head very quickly. And it's most of the time, I have to say, for me, most of the time, it's just not covering the food correctly.

Nancy 46:05
Yeah. Well, I flew to Miami. And when I got there, my insulin, the insulin wasn't working. It didn't seem like it was working. And I, you know, and my doctor had told me, Nancy, if it doesn't seem like it's working, just give yourself more. So I had those two things. You know, you said that, you said that if something if it doesn't seem like it's working, it's probably not you, it's probably something else, you know. And she said, just use more. So I kept using more and more and more and finally, stupid that I was I primed my pen. And there was nothing came out air and myself, but I was like, oh, so I think I probably did about, you know, six or seven times. And finally, I did eight units. And finally I got a trickle. So So then after that, I was fine. So incredibly

Scott Benner 47:01
stretch, you brought that up, because tomorrow, there's a variables episode going up with Jenny and I about travel. And she brings that up about how to prime things when you're going on off airplanes. So

Nancy 47:16
that kind of opened my mind up to Oh, a pump. I know that's going to happen with me, there's going to be air in there. And I'm going to think I'm giving getting insulin. So I'm just I'm preparing myself for all the all the things that could go wrong.

Scott Benner 47:29
I guess it depends on which pump you end up with, too. Because if you have tubing, then that's more of an issue on the pod, you won't see that problem with the same way.

Nancy 47:36
Right? Yeah, I, you know, when I first listened to you, I tried to get on the pod, but Medicare wouldn't cover it the way that they cover the T slim, really, with my insurance, because I don't have a, you know, a really good prescription plan. And at the time, you know, they, which was about a year and a half ago or so, at the time, they were a prescription, you know, you got it in your pharmacy, whereas the T Slim is DME. Yeah, medical equipment, and the insulin is included. So and that goes through the DME so I'm on Medicare Part,

Scott Benner 48:16
blue, you know, just out there. Remember to prime your tubing when you get off a plane and do this. Thanks, Jenny. It describes it all really well. And that it's like a really short episode, but she does such a good job with

Nancy 48:26
it. Yeah, yeah. Listen to it. Yeah,

Scott Benner 48:29
thank you. i I'm, I'm so thrilled that you love the show. It's, um, it just it tickles me that we're the show reaches people in all kinds of scales of, you know, spots in life. And I also enjoyed when you said that you thought originally it was for children. And I've always maintained that the podcast is for anybody who uses insulin, it doesn't matter how old you are. Was it the name that made it feel younger? Was it that I was the father of a child with diabetes with part three?

Nancy 49:04
I didn't even know who you were. And I mean, I should because I said before that I knew who you were, but I didn't I what I knew was that I'd seen juicebox come up, you know, on the look. I don't know what it looks like, because I but it looks like a little cartoon. Kind of thing. Or

Scott Benner 49:20
Oh, good. No, it used to be a picture of my daughter when she was young on the thing. And now it's just a logo. So it looked like there's a kid so you thought kid, whatever it

Nancy 49:31
was, whatever it was, yeah, I just thought, well, you know, and it was juice box and I thought I've never had a juice box. So you know that I didn't fit in that category. But

Scott Benner 49:41
now this you know, I'm amazing. And you should have started listening right away when you saw it. Is that right?

Nancy 49:47
I know. I agree. 100% Yeah, no, and I mean, if I could make you cry, I hope I do. Because I think that you you the other thing that I see you is that you just the best episodes are when you're just you, you know you have a real, you're really interested in people, you're really not critical at all, you're not judgmental, you really want to help you. You really, you're very supportive. You know, I go I can I get it, if you get pissed a little bit, and you try to contain it, you know, but I just I, and I think a lot of people can identify with that. And I think that's just something that you have tapped into, you know, you figured it out. And a lot of people don't ever figure that out.

Scott Benner 50:39
I very desperately for reasons that I don't completely understand. want people to be okay. Yes, I feel very responsible for things that I'm not responsible for sometimes. You know, so you make this thing and you put it out into the world and it find somebody, and then it proves out. And then somehow that makes it feel like my responsibility to find more people. And I know it's not, and I'm not tortured by it. I'm just driven by it. So, you know, I think you are such a great example, at your age to find a thing that really, I mean, it's a podcast, it shouldn't. It shouldn't be for you, you know what I mean? Like, like, common sense would tell you like, I'm probably not talking to a lot of people in their 70s. But then here it is, and it works. And it works for you, too. And that. And that makes me happy. And it's fulfilling. And then I can enjoy that for a split second before it makes me feel like well, then aren't there more people I should be finding with the podcast?

Nancy 51:46
Wow. You know, you know, when I, when I recommend your podcast, the phrase I use the most is he'll help, you know, if you listen, you'll learn how to use insulin. Okay, you know, so and a lot of times, I'll you know, there'll be a certain like, there was a researcher that you had on that would have some kind of treatment for diabetes, and I was thinking home, maybe I should contact him to find out if he knows about this genetic predisposition or whatever. But, you know, certain certain podcasts will just ring a bell for someone, you know, sometimes it's my sister who doesn't have diabetes, but that I think that she might be interested. I think you did a nurse you interviewed a nurse one time and, and how she was shocked that what she knew about diabetes wasn't enough to help him for her to Jen, was that. Was that? Remember you, Todd? Yeah. Yeah. What's your nurse? I didn't she

Scott Benner 52:48
was, yeah, I put up an episode today, I have to tell you is probably the proudest, I've been of the podcast in a while. It's with an endocrinologist, who, if you really stopped and listened to her whole conversation, the podcast changed the way she helps people. And as she's describing, becoming educated, and being enthusiastic, and then kind of settling into the way things work, and I forget the exact for, I don't want to put words in her mouth, but maybe not doing as well for her patients as she could have, and then finding the podcast and being revitalized by it. That's the most proud I felt in a while when I was talking to some guy. So yeah, you know,

Nancy 53:31
you know what I mean, one of the things that I look, look at sometimes is I'm 75 Can I start another career at this age? I mean, I did at 57. But can I do it at 75. Because what I've learned about diabetes, and, and even the way that I eat has been so helpful, that I would love to be able and I'm a social worker, you know, so I like to help people. You know, but I mean, this is such a, such a helpful, helpful thing for people to understand, because I think once they, once they, once they really understand that they have more control over their life, and they think they do they don't have to just give into it like a deep well, you know, just keep going deeper and deeper. For some people, you know, and I know all people aren't like that, but for some people, it would make a huge difference. And I'm sure it does make a huge difference.

Scott Benner 54:27
Yeah, it's um, I think it's lovely. And I I've known a lot of people over the years who have tried to help other people, and it's always valuable and always selfless, hopefully, and they do a great job in their own way. It's when it scales up that it becomes strange, like when you start really reaching people, and it's a lot of people, you become very aware of the other stuff that you don't think exists, like you have an interpretation of me. And so does everyone else who's listening. And it's based on things that you probably think I'm doing on purpose. And many times, it's I'm not doing anything on purpose. There are times when I, you know, I talked to a guy about his automotive engineer. And we, if you listen to it, you could be confused to thinking that we talked about cars for a while. But I was talking about diabetes in my head, like I was talking about staying abreast of new technology keeping up, not falling behind. And to me, I mean, I didn't Did I do it on purpose? I did a little, you know what I mean? Like, but it wasn't some Machiavellian thing where I thought, I'll have this guy on it. It just it's the way the conversation went. And we got towards the end of it. And he said something like, well, to bring it back to diabetes. And I laughed, and I was like, nah, this whole thing's been about diabetes. I've been talking about diabetes the whole time. And he's like, Oh, yeah. And I'm like, so there, there's little stuff like that, you know, once you realize you're talking to a large group of people, and that nobody's going to feel the same way. Like, there are things about me that you like that other people hate? And probably vice versa.

Nancy 56:16
Can I Can I say something about? There are things about you that I don't like, but because the core of you? I, I know what you're, I know what you're about. I know, you're about helping people to manage their insulin. Yeah, I love that. I love that. Because that's what you know that, you know that you're about that?

Scott Benner 56:43
I have to say anything, I think that when you're when you're broadcasting to a lot of people, you there's two decisions to make, you can either be yourself and know for certain that there are going to be some things about yourself that that are going to rub people wrong. Or you can sanitize yourself. And in my opinion, then just sound like you've I don't know the best way to put it, but it's not real anymore. If you know I'm holding something back then how could you possibly believe anything that I'm saying if I if I started talking in a big fake voice, and then oh, you know, like that all was happening constantly. Even when I like when I make the beginning of the podcast, like when I'm like, welcome to the juice box, I'm kind of messing around, you know, like, by doing a stupid voice in my head, it's a stupid voice for a couple of seconds. If I had my way, the podcast would just start with people talking. Like it wouldn't even you know, but I have to brand it, I have to say this is the episode, I gotta tell you who the sponsors are. But if it was up to me, if I didn't have to have sponsors, this, you and I would have started talking, I would have hit record and that'd be the first thing you'd hear when you turn the episode on. I really don't want to shine things up too much. Because I know people who put out content like that, and frankly, I don't know how anyone listens to it. So you know, so rather me curse once and that make you uncomfortable, or I tell a sex joke or something and that makes you uncomfortable or something like that. But it's better than me, swallowing my thought and you hearing through your headphones. He was gonna say something and he didn't say it. Because then I think it sounds disingenuous. So I don't know. You have to hate me a little like, you're a couple of generations ahead of me. I must do a number of things you don't like. And that's not why. Why? Tell me why. One of the things you really don't like about me, I'm gonna start asking people what they don't like about me. It'll be more fun. Good. Oh,

Nancy 58:30
my gosh. Nothing pops in my head.

Scott Benner 58:34
See, you just don't want to say it. But you do.

Nancy 58:39
Know, I want to I want to say whatever it is because I I agree with you. Yeah, I think if we're as honest as we can be, then we're more. Yeah, more listenable?

Scott Benner 58:52
I received a letter one time from a woman who she she went on to tell me everything about me that she didn't like, and it felt a little disconnected. Like at some point, maybe she was yelling at somebody that wasn't me. But she said a couple of things in the letter. I was like, she's right about this. So but I, but I wouldn't just stop it. I just took it into account. And I thought okay, she might be right about this. Let me let me make sure I now I have a way. Like for instance, she's like you talk too much. And there's part of me that's like, well, it's a podcast, like if I don't talk, you know, like that. She's like, well let the guest talking over some guests are chattier than others. You know, like, do you want to be interested? Or do you want to sit and listen for someone to come up with a thought like I have to make a decision. But what I do now is when I make the transcripts, the service I use tells me what percentage of time I spoke versus what percentage of time the guest speaks. And I do let my eyes run over that number at the end when I'm done every time and if I see it get farther than a 6040 split. I stopped To like, like, I pay attention to that, no, I had, but most of the time, I do not speak more than 10% more than the other person. So,

Nancy 1:00:08
you know what I? What's my thought on that? I was gonna say something about that. Oh, yeah, one of the things that I think is that you we don't know which people are chatting in which people aren't because you're the one that's having to interview them. But you know, you're the one that's having to talk to them. So you're the one that kind of sit there Oh, do I have to know, are they gonna say something if I went a little bit longer, or, you know, so you're the one that has to make that decision, whereas we have to do is just sit and listen to you.

Scott Benner 1:00:38
I guarantee you that I can think of three episodes right now that if I did not spice up and get talking, you would have considered jumping out of a window while you're listening to it. I can't take this. But they were still good interviews, those people just didn't have as much to offer. In in volume, they still had good content. It just they didn't. They weren't voluminous with their content. And but I'll tell you another thing that the podcast taught me was just to slow down. I mean, I think if you go back, I'm speaking more quickly. In older episodes, I had a real desire to not let there be any pauses I wanted, I wanted it to be, you know, I didn't want you to lose interest. So I think that's helping me too. And I genuinely believe I'm doing this two years from now, I should be better at it two years from now than I am now. And I'm thinking I'm doing pretty well now. So we'll see, I

Nancy 1:01:33
think you're doing well, you know, you're doing well. But I think that sometimes, not often, I haven't seen this very often. But there are some times you get someone on there that talks so fast. It's probably nerves. But they talk so fast, that it's, you know, that it's kind of hard to keep up sometimes. Yeah. And they'll kind of curl over their time, you know, roll over there. It's probably nerve, you know, nerves. And that probably just happens in the beginning. But because I've heard you say many times that you talk fast, or the East Coast talks fast. And you know, I'm California. So you know, I don't talk fast, I guess.

Scott Benner 1:02:10
Well, there are some people I've that your pauses are so long, some of you, I can just I can hear my brain is yelling at me. It's like, Oh, my God, say something, say something, I've taken pauses. I did it once for this one guy. I loved his content, but he spoke so slowly. So I spent like an extra hour, and I took all the I took the gaps out of his of his pauses. And that's not easy to do in like, trust me, it's, it's not easy. So like, I just was like, I like what he's saying I want people to hear it. But man, if he pauses like that, again, I'm gonna like lose my mind, you know? So, and I tried to think of what it's like for you guys to listen, I also am a fan of audio. And I know what I like to listen to. And if it if this podcast gets too far away from something I would listen to, then I wouldn't even know how to give it to you. I wouldn't feel comfortable putting it out. So

Nancy 1:03:07
the format of it is so is cool. Because you know, whatever you're talking about, it seems like there's always and I used to say this, I probably would still say there's always at least one takeaway, oh, Pre-Bolus a little bit sooner or, you know, whatever it might be, there's always some, you know, some little takeaway that makes it worth listening to. And it becomes, I think it and you and you say this, too, it kind of grows in you. And then all of a sudden you realize, oh, wow, yeah, wonder how, how did that?

Scott Benner 1:03:42
How do I learn all this?

Nancy 1:03:42
How do I get? Yeah, how did I get to where I am? You know,

Scott Benner 1:03:45
same way my kids yell at their yell about their math teacher at the beginning of the year. This lady doesn't know what she's talking about. She sucks. And at the end of the year, they have good grades, and they understand the math. I don't know how it happens, but it does. Yeah, I'll tell you that part of that for me. I won't say the name of it, obviously. But there's a website that has rock solid information about type one diabetes. And I don't read I don't read it all, if I'm being honest, but I don't read it. But I know it exists. And I've seen it enough times. And I know the person who runs the site. And if you back in the day would have said Who stuff is more popular Scott's or this site, you would have just assumed that site is very professionally done. It's well supported with money, like it's done really well. But that person came to me and said, How do you get so many people to read your blog? And I thought, Wait, they don't read yours. And then we dug into it. And wow, nobody reads that site. And I'm like, but that doesn't make sense. It's full of really great information. So then I started paying attention to the site for a little while, and they were putting out great stuff. But nobody cares. Nobody's gonna read your boring descriptions of whatever it's not if people have a finite amount of time to live and then And even if it's there to their benefit, they're going to have a hard time absorbing stuff that's so dry and it's boring, you know. So if you get to listen, if somebody gets to listen to you and I talked for an hour, and they take something from it, that's terrific. But if you and I had five points to make, and I went through them like a schoolmarm, and you answered, like you were reading from bullet points, I guarantee and no one's listening to this podcast. And so I'm not gonna do that, like, off the top of my head. You were diagnosed in your 70s. That's on? That's weird. You had cancer. Right? Right. You had cancer. That's amazing. You're doing well, you learned about your family members who have cancer, you know, you have parents who are older, you found a podcast that that helped you, you've, you've looked around, you're worried about yourself and looking into it, but you're not overwhelming yourself with what ifs and y's. You talked about not looking backwards, even though you don't think you said that you talked about staying forward moving forward. And you're going to make someone comfortable, somebody is going to have gotten this. Also, you said something that I'm always thinking and never say the episodes were little kids are good. And they're worth listening to, except, you know, those are the ones that don't get listened to as much. But I still put them out. Because I know they're important. And I think people are gonna figure out that they're important to listen to an 11 year olds opinion of what it's like to have diabetes, and not you just infer what you think it's like for him to have diabetes on to him, you know,

Nancy 1:06:31
you know, shocks me about those interviews, is they age of the kids and how kind of mature they are, you know, the understanding that they have about things? And I'm like, There's no way I was like that at that age. You know, I don't know if I had diabetes early, if it would have made a difference, because I've heard from some of them, and I think you've even asked that question sometimes do you think that diabetes has, you know, changed the way that you look at things? And yeah, I don't know if they're even old enough to understand that it does. But

Scott Benner 1:07:06
no one knows how it impacts them. It but that's why you ask the questions to hear them. Think about it. Like that's they're not going to anybody who thinks that you can just say today's episode is going to be about XY and Z. And that that's going to be interesting is wrong. Anyone who thinks that when you ask someone a question, they know the answer, you're wrong. I've asked a lot of people a lot of questions. And the people who know the answer in a split second suck, it's boring. And it's an it's, and it's it's pre rehearse, they've answered the question 1000 times, I get nothing out of hearing from that person. It's not it's not valuable. That's just not real. No, it's somebody's reading their life out loud. And they, for some reason, are in a position where they have to say that a lot, I want to hear you just dig into your brain for a second, or to come out of nowhere and say, You know what, I'm losing sometimes common sense. Like, that's not a thing people would admit to, you know, and you have to have a conversation like this, if you want to get to those things. And for people who understand that, they'll listen to these episodes. And for people who don't understand that this isn't going to be for them. So that's cool, you know, but I can't make something that's for everybody. I got to make what I think is interesting, and what I think is valuable.

Nancy 1:08:21
But I mean, I think the amount of people that you have following you and the amount of people that listen to the podcast and amount of downloads is, to me is an interesting reflection of how many people are really real or identify with realness, or even common sense. Like you said, you know, how many people because you, you know, that that isn't, as I don't know, if it's not as common, but uh, you know, I was a counselor. So I met, I talked to a lot of different people. And it's shocking, that you can trust your common sense. That's shocking. But I, you know, you talk about it all the time. And I think it's, it's like,

Scott Benner 1:09:05
you know, you just have to trust your gut and see what's happening. And listen, some of those people who tried to put out content that's inauthentic. I mean, I don't know if they're in authentic, but they might not know who they are enough to be authentic. And I've interviewed people before, who don't know themselves. It's clear when you're talking to them, they don't know how they feel. They don't know why they do things. And sometimes that's even interesting to listen to somebody not understand. i I'm probably forever going to use this as an example. But there's a young girl that came on to talk about psychedelic drugs. And she wanted to talk to you want to tell people about how to use drugs safe safely. And I was like, okay, come on and talk about that. And I really, we talked for a while, you know, we were maybe most of the way through the episode, and I had the feeling like she mostly probably smoked pot and took mushrooms once in a while, like recreationally and I said you don't really do any real hard drugs just now. And there's a pause because, well, cocaine. I was like, Well, you know, but I didn't say what in the moment in the moment I just said, Okay, this is how she feels. Let her say how she feels. And you know, and but in my mind, I was like, she's the Think of cocaine as a hard drug. Well, that's interesting. You know, like, and maybe, and then I started thinking like, is it? I mean, I've never done it, but is it not? Is it me? Does she not know? It just brings up all these like, these interesting questions that should make your brain think like, I think when you're done listening to the podcast, you should still be having a conversation with yourself when it's over, or I didn't do a very good job. That's all I'm not supposed to make everything right, or answer everybody's questions or scold some girl for saying cocaine's not a hard drug. You know, I mean, like, that's not my that's not my job. My job is to let her talk about it and let you hear it. And, and see, I can't I don't how did this turn out therapy for me, Nancy, what's going on?

Nancy 1:11:01
I don't know. But let me say something. Because I, you brought up something that really had, I've been thinking about this a lot lately. I'm kind of on that about, you know, how our thinking kind of creates our reality. And, you know, what, really is reality and all that kind of stuff. But anyway, one of the things that I've been wondering about because of my age, is am I sick? You know, am I considered sick? I mean, if, when I first got diabetes, I kept hearing, you know, you can do whatever you want to do, you know, you don't have to change your life, everything. Well. I tried that. And I would have lows in the middle of a counseling session to eat or I'd have a high and have to inject insulin, you know, and I thought, What does this mean? You can't you know, you can do everything that you could do before. So I thought like very black and white like, okay, yeah, very black and white, you know, that everything I was doing before, you know, the way I was eating, I could continue eating, I could have snacks I could have. I mean, I couldn't do any of that stuff if I wanted to have a good blood sugar.

Scott Benner 1:12:13
So I think that good. Go ahead. I was gonna say when they say that, I think that's them going. I think that's them saying, You don't have to go home and pull the car into the garage and close the door and let it run. Like, don't worry, your life's gonna be okay, you can do all the things they don't say the rest of it's always the rest of the sentence they live out, you know, hey, you can do everything that you used to do with diabetes, except you better make sure your Basal insulins, right and don't go Bolus in a big meal before you go for a run. And but like they don't say that they never say the rest. They say the upbeat part. They say the easy part. They don't say the stuff you need to know. And that's the fascinating thing.

Nancy 1:12:52
And that, you know, that was the shock. That was the I think the shock with because I had seen my son, but I never really got involved with his insulin or anything like that. So I saw my son and he just looked like he was doing the same thing. He's, he's always he'd always done. But once we started talking, you know, when I was diagnosed, I mean, I have a CGM. He doesn't, you know, he, you know, one time we went in, and you know, the thing I want to tell you that you said, but, you know, I went, I looked at my blood sugar, and it was like, 150 or something. And he went, I said, what's yours, Jeremy? He runs and takes his blood sugar. He goes, Oh, my gosh, I need insulin. It's 320. So every, you know, when I'm around him, he sees the benefit of having a CGM, but he didn't. I don't think he was even aware of it before.

Scott Benner 1:13:44
I told him, Do you think he'll get one?

Nancy 1:13:47
I think he will. You know, I think he will. Um, there was one other thing I wanted to say about, about what we were talking about how life I don't remember, I don't want to make it up.

Scott Benner 1:14:03
Well, what I was gonna say is, start by talking about a t shirt slogan, you saw one point? Well, this is the point where I asked you if we've talked about everything that you want to talk about. So have we?

Nancy 1:14:18
I mean, I think so I can't think of anything that I told you how great you are. And I love the podcast and like, talk talked about the common sense that you express and you know how I share that, you know, if you want to learn how to use insulin, listen to this podcast. And I mean, those things were important to me so that you know, oh, your picture is great. This This is

Scott Benner 1:14:43
the photo that you get that you're seeing on the Zoom. That's me that's me posing in front of Mount Rainier, except you can't see Mount Rainier anymore, just because I was happy with how I looked in the photo. I don't often take photos of myself where I'm like, huh, I don't look hideous. So I was like,

Nancy 1:15:02
you know, I feel like I'm really, you know, given to you. Yeah, like I'm talking to you. I mean, I know I turned my video off for a minute. And that was, but no, I, you know, we could probably talk all day if we wanted to, but everything good.

Scott Benner 1:15:17
I'm glad so and I think you're right I am. I agree we can keep talking. I'm going to go to Home Depot with Arden now and pick out a new ceiling fan for her bedroom because hers just stopped working. And she very adamantly told me it needed to be replaced quickly. So I was like, Okay, we will Arden's body doesn't regulate temperature as well as any of us would like. So she needs to have a couple of implements around her to help

Nancy 1:15:42
her out. Unfortunately, sometimes thyroid does that.

Scott Benner 1:15:45
Yeah, that's definitely part of that. And her medications really dialed in. So it just, I just think it's gonna be her her cross the bear. But actually, she's, uh, I just ordered today, I can tell you this, because this won't go up forever. I just ordered a microphone stand today, I have her microphone, I've got the stand now. And she's on my schedule twice in the next couple of weeks. So I'm gonna record a bunch together. And I'm basically going to interviewer and then we're going to trance kind of move into the stuff I want her to know when she goes to college, and have those conversations. So I have been trying for years to get her to do this. I think I finally got her. I know she doesn't want to do it. But I don't know why. I don't know if she'll know why exactly. But she needs the she needs hours, community service hours for school. She asked her, she asked her, her guidance counselor, if I did this with this kind of community service hours. So she's going to get hours for the time she's being interviewed. We're gonna show her how to edit the show. And so she's gonna get a bunch of different stuff. Wow. But anyway, so that's, that's hopefully it'll be of some service to people when they hear it. But yeah, I'm gonna,

Nancy 1:17:03
I'm sure, you know, because you talk about her all the time. And you know what you've learned? There's one other thing I wanted to say, Okay. One time you said something to the effect. I don't know, you were talking about something and interviewing someone. And maybe you were talking about? Well, you know, when I first when Arden was first diagnosed, and I was frustrated, didn't know what was going on, took probably three or four years and you know, gradually things started, you know, I started I think what's your 500 series, you know, started knowing more and everything. And you know, when I hear that, because I've only been diagnosed for a year and a half, or almost two years. But I'll tell you, when I was first diagnosed, I read so much I learned so much. I I saw it. And when I heard the first time you say that I thought, but I know a lot. I really know a lot, you know? And then I thought how much more can I know? I mean, I'm putting 24/7 into this diabetes, you know, and how to eat and how to manage insulin, and you know, what kind of insulin and all that kind of stuff. And when I hear you say that, that, you know, it could you know, wait till you've been a diabetic for three years. And I go what, right? But but it's, it's, it's very comforting, because now I'm going to get a pump. So I know it's gonna change, you know, but it's very comforting to know that there's always more over 500

Scott Benner 1:18:31
Yeah. No, I definitely thought I definitely thought there'd be an end to it when I first started doing it, but I was just taking advice from someone that it didn't end up being great advice. They said that you'll run out of stuff to talk about. And I should have known when they said it. Like, I can't imagine me running out of things to talk about, but I meant important things. I just think it's gonna keep growing, I think, you know, algorithms are gonna come and I mean, look at you, you're gonna, you're gonna probably be using an algorithm soon. You know. And that's really exciting. And I think if we really think of you specifically, you have this kind of, like amount of time here, too. And don't get me wrong, you're very, like, you know, you again, you do not come off like you're 73 When I'm looking at you and I'm talking to you, but you have an amount of time to get really good at that. And then because there might be a day where you're a little slower, and this thing still gonna work the same for you. And that'll be amazing. You know, like there won't be as many opportunities for things to go wrong. And I think that'll be a big deal for you, you know, in your life just the way it is when in anyone's honestly. So and I'm ready to talk about that stuff.

Nancy 1:19:44
Yeah, now fortunately, I have a son that's diabetic, so he understands. So my daughter I might be living with my son.

Scott Benner 1:19:52
Yeah, well, I hope he ends up with some, some upgraded technology. I think that would be really great for him. And I want to thank you so much for doing this and taking the time out of your day to do this. It was it was really fun. And I know you were excited to do it. I could tell by your notes, so I appreciate that very much.

Nancy 1:20:10
Okay. Wow, great talking with you.

Scott Benner 1:20:13
Yeah, you too. Hold on one second. Go. Go. What? got fat? Yeah, I get getting the fans not the problem. It's that I got to put it up. And I don't know the last time I did that, and I gotta remember how to put up a ceiling fan. But now I thank you hold on one second.

A huge thanks to Nancy for coming on the show today and telling us all her story. And I'd like to thank the Contour Next One blood glucose meter for being a longtime sponsor of the Juicebox Podcast. Find out more and get started today at contour next one.com forward slash juice box. It's actually a really good website. I mean, as far as websites for medical stuff goes, it's very complete and informative. I mean that sincerely. I'm a fan of well done websites. Contour next one.com forward slash juicebox even said it again. Don't forget to head over to the T one D exchange T one D exchange.org. Forward slash juice box. Take the survey help out people with diabetes in the podcast. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast.

#610 Fort Brag on Chad

Tara is the mother of a child with type 1 diabetes and the wife of Chad from episode 409.

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
Hello friends, and welcome to episode 610. Love the Juicebox Podcast a

little over a year ago, the gentleman came on the show to talk about his child's diagnosis. That man had a wife. That person is terror, and she's here today to expand on their story. So if you want to hear the beginning part you have to go to Episode 409 For Mathias. But if you're all caught up, settle in and get started, because this is Tara, and she's the mother of a child with type one diabetes. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan, or becoming bold with insulin. If you'd like to support the podcast and support people living with type one diabetes, all you have to do is be a US citizen who is either the parent of a child with type one or type one themselves. Go to T one D exchange.org. Forward slash choose box fill out a quick survey that can be done from your phone while you're on the sofa. I mean, on the can even I mean like while you're on the toilet, T one D exchange.org forward slash juicebox you'll be supporting people with type one diabetes and the Juicebox Podcast when you complete that survey

this show is sponsored today by the glucagon that my daughter carries G voc hypo penne Find out more at G Vogue glucagon.com forward slash Juicebox Podcast is also sponsored by touched by type one. Now you can find out more about touch by type one on their website touched by type one.org or on their Facebook and Instagram pages. Touch by type one has a mission to elevate awareness of type one diabetes to raise funds to find a cure and to inspire others to thrive.

Tara Caudill 2:05
My name is Tara Caudill. I'm the wife of Chad coddle who did episode 409 and the mother of Matthias coddle is our type one diabetic four year old.

Scott Benner 2:14
And 409 was called for Mathias is that right? That is right. I see. I thought that that or somebody said, I don't know exactly how it happened anymore. I do remember the conversation being great. And then saying one day I would like to talk to your wife and I guess this is you and here you are. Here I am. Yeah. Is it? Is it was it? What's my question? How was it listening to your husband talk about the diabetes without you having input into what was being said.

Tara Caudill 2:48
It was exciting. Because I was I was very proud of him. Not like a like pat him on the back. Oh, good boy kind of way. But uh, I was happy that he was able to voice his side of it, especially because he took he took the full brunt of it. I was gone when all of it went down. So it was nice that he was able to share his story, especially being you know, him being a dad, you know, and he's, he's the best dad that I could ever asked to be the mother of my kids, especially when you know, crap hit the fan.

Scott Benner 3:20
He's the best that I could ever asked to be the mother of my kids. That makes sense. Did you mean to say that, or did it just come out? Naturally?

Tara Caudill 3:28
It kind of just came out that way. Yeah. But you know what I meant?

Scott Benner 3:31
No, I actually I think you meant that. And I sometimes I think my wife used to speak to me speak about me like that, too. So well. I mean, he's a good mom. Like, all right. Okay. So, so this is coming back to me a little bit. You were people are like, couldn't you have just figured out what but you know, I don't know what I'm talking about before we start recording. So you were in the military, right? Yes. And your son was diagnosed, there was some like, there was some drop, give me give me your side of the diagnosis.

Tara Caudill 4:04
Sure. So I was actually getting ready to graduate basic training. This would have been in February of 2019. And I wasn't, I wasn't supposed to be able to call home this night. But it ended up being Valentine's Day night, we were able to call home. And the drill sergeants were like, you're only supposed to ask like these three questions. We were only supposed to ask like, are you coming? Do you know how to get there? Do you know what time to be there? And then we were basically supposed to hang up. But of course, we always tried to squeeze in conversation into a 62nd phone call. And so when I called Chad Valentine's Day, nice. I was like, Hey, baby, you don't have Valentine's Day. I get the call, like surprised. And he goes, Yeah, yeah. How much time do you have? And I said why not long. I just have to ask these three questions. And he goes, Yeah, okay, I got that. How much time do you have? And I was like, What's going on? You're scaring me. And he said, he's gonna be okay. But we're in the ER right now in the bias was just diagnosed type one diabetic. Wow. And it was so out of left field, I just remember my jaw, like hit the floor. I was what? I cannot have heard you correctly. Did you? Did you really just say that? And he said, Yeah, I'm in the ER with him right now. He's like, your grandma is coming up from Florida. And your mom and dad are already on the road. They're coming down from Kentucky, we were living in Georgia at the time. And we're, we're going to be fine. He's, we're going to be here for a few days. And he said, as long as everything goes, well here, we should still be at your family day in your graduation. And it was in like, less than a week. I think he had like, three or four days before they had to hit the road to make a trip to Fort Jackson, to get there for my family day. But uh, I learned on family day that he he wasn't going to tell me at first. And to give context to that, because it was so close to my graduation, he the only way he was going to be able to contact me was through Red Cross message. And he was terrified that if he sent a Red Cross message, and that I received it, that they would pull me out of training. And that was just going to delay my graduation, which you know, overall, I would have, I would have been away from home longer. And so I I did tell him after the fact I was like, I completely understand that. You know, I understand why you went about it the way you did if it had been like, right after I had left for basic and was gone for, you know, the three months or what have you. And then he didn't tell me that whole time. Yeah, words definitely would have would have been spoken.

Scott Benner 7:01
But he was making a decision because it would have kept you there longer in this moment. That's interesting. Hey, I want to digress for half a second for people who say they miss hearing Basal snore on the podcast. I think we just heard terrorists dog drink about a gallon of water during the story. She told him I right about that time. Yeah, it might have been. No, don't be sorry. That's why you don't hear Basal snoring anymore, because I moved away from where the dogs are I but I still get notes like I miss Basal snoring. I'm like, I don't miss editing out all the noise. So sorry, but But um, okay, so this is kind of fascinating, in that I don't have any military knowledge. So you're in basic training, it sounds like for three months, there's a graduation date, you have very little contact with the outside world or your family. And so your husband has to make the decision. Like if I tell her that this is happening, like there's no special circumstances where he just calls a number and says, Hey, you guys got my wife over there in basic training. And my kid has type one diabetes now like, there's no it doesn't turn into a more human interaction. It stays very military and by the rules no matter what's going on. And then if you need to have that conversation, then you have to break away from what you're doing, which elongates your time there. I understand that right?

Tara Caudill 8:21
Yeah, pretty much. I had a friend whose grandfather died when we were in basic together. And the only way she found out was through Red Cross message.

Scott Benner 8:32
And then, and that's just like a note, like, it's, it makes it feel like a telegram when you say it like that, but it just, it just comes written to you or somebody. How does that work? If that

Tara Caudill 8:42
happens, um, so yeah, they they contact through Red Cross message. I've never actually had to do it before. But um, there was a drill sergeant who pulled who pulled her aside, and I went with her as her battle buddy, because you can't be alone during basic training. So I went with her as her battle buddy to go talk with the drill sergeant. And I kind of stepped back because I realized what was happening and they handed her a sheet of paper. And, you know, they said, you know, we're sorry for your loss. You know, if you if you want to try and call home, they afforded her that opportunity, and she was able to call home.

Scott Benner 9:15
Wow. Okay, so the, the time that your husband imagines works out and they're able to come to your graduation, yes, thank God. So you see your son with type one diabetes for the first time at that moment. I'm wondering what that was like, because it's got to be an emotional day. Aside from that.

Tara Caudill 9:37
I don't think I don't think at first it really hit me. I could tell that he didn't feel very well. He wasn't his he was coming back to life, essentially. But uh, he was just eating nonstop. So whenever we went to go get something to eat for that family day. He was just constantly, you know, scuffing stuff down and Now, you know, he was Matthias was trying to eat or getting ready to eat. And it was long before we found like Juicebox Podcast or anything like that. So my husband's you know, pulling out the syringes taken out the the meter, you know, to prick his finger and everything like that. And my mom is type one diabetic. She's been type one since she was for around four or five. So it was something that I was used to seeing. But now it's my own kid. Was the complete in that it was completely different at that point. Yeah, I just, I kind of just had to sit there and be like, What? What is happening? Do

Scott Benner 10:39
you? Did you know how? I mean? I know you've had seen it with your mom the whole time. But did you honestly know anything about it?

Tara Caudill 10:48
I knew enough to help her out if she needed it. But in terms of her day to day care. I mean, she had been doing it for like two three decades at that point. So I only intervened when, when it was necessary. Basically.

Scott Benner 11:02
Did your mom have any real emergencies while you were growing up?

Tara Caudill 11:05
When I was 12, I think I was 12. So this would have been mid 2000s. There was one night my dad's been in rock and roll bands since before I was born. And he was gone one night playing a gig. And so whenever he would be gone, play a gig that night, I would stay in the room with my mom. And it just so happened this one particular night, I'll never forget it. I watched the clock strikes 12 at midnight. And then I felt the bed start shaking. And her I looked over at her and her arm was shaking, and she couldn't really talk. She wasn't having it wasn't like a full blown seizure. But her body was definitely like, Yo, you, you need to do something. And so thankfully, we had talked about it before. And so I ran over to her nightstand and I got her. I remember if something soft that she could eat or I don't think it was juice in her nightstand or anything. But uh, I helped her get that down and helped her check her sugar and called 911. And then in like, I don't know, 2030 minutes an ambulance showed up just to check her and she was okay.

Scott Benner 12:17
I had a hard time listening to that story because you said that you were 12 in the mid 2000s. And it made me feel really old.

Tara Caudill 12:25
I'm sorry. I'm so confused. I

Scott Benner 12:27
was like, I'm like, No way. No one's young, then like as like a god. Tara, how old are you?

Tara Caudill 12:33
I'm 28 Oh, my God. Terrible.

Scott Benner 12:37
Terrible for me. It's good for you. So you've got this experience with your mom, does that come into your head? Once you realize your son has type one?

Tara Caudill 12:46
It does. Because at that point, that's all that I had to go on. Right?

Scott Benner 12:50
So did so was that your expectation? Or? I mean, what could you even i This is a weird question. But could you even enjoy that day? Or is that day last?

Tara Caudill 13:02
Out? No, we were still very much able to enjoy it. Matthias was he was smiling at some point. I was able to just kind of sit with him and hold him. We didn't really walk around the whole a whole lot of places. We just kind of sat there and enjoyed enjoyed finally being together, you know, after it was like 10 weeks. So I was finally able to kind of feel like a mom again, which I hadn't felt like a mom in a long time at that point. And then so we had our family day, and then the next day it was graduation. And because of some scheduling mishaps with the battalion that I was assigned to, we got one extra day, which never ever happened. But their their loss was my game. So I obviously took the extra day. Hey, um, remind

Scott Benner 13:52
Chad Chad is the military as well. Right? Was Yes. Yeah, he still is yes. And are you as well? Yes. Okay, so how does that work? Like for scheduling? And like, are you not home for stretches of time? Is he not home for stretches of time.

Tara Caudill 14:10
So he's active duty, and I am in the reserve. So we're we're in the middle of pcse, which means permanent change of station. We actually just got to Texas this week. So I finished up my annual training with my unit in Georgia, and then kind of just, you know, waved at everybody and said, you know, I'll see you later. And so I'm in the middle of trying to transfer units right now. And that way I can stay local to the unit just because it's easier for the kids.

Scott Benner 14:40
Because if next time you have to go back you have to go back to Georgia. Yes. And Chad So, Chad's in Texas, he's, he's active in Texas.

Tara Caudill 14:52
Mm hmm. Yeah, he just finishes his like job as a recruiter and the army norm He kind of made him do it. He didn't really want to. But so now he's back here. And once his leave is over here and like the next week or so, he'll be going back to his regular, his regular army job as a cab scout.

Unknown Speaker 15:14
What is that?

Tara Caudill 15:16
Cavalry scout? They're like the eyes and the ears of the commander on the battlefield.

Scott Benner 15:20
Okay. Yeah. Project manager.

Tara Caudill 15:25
That's one way to look at it.

Scott Benner 15:27
It's an odd way to look at it. But it's the first thing that I thought of. And what did you What was your specialty? When, what? What do you do?

Tara Caudill 15:35
So I'm an intel analyst.

Scott Benner 15:38
Interesting. Does that help with the diabetes at all?

Tara Caudill 15:44
Um, it can now that it's another way that I've learned to think critically about the information that I have. So I can I'm getting better at being able to go okay, what is happening here? And then what are the changes that need to occur so that this low or this high doesn't happen again,

Scott Benner 16:05
kind of Gotcha. Are you having luck with that? Are you having more long stretches of stability with blood sugar's?

Tara Caudill 16:13
I think we're in the middle of his Basal needing to be changed, because I had to bump it up the other night, and it worked fantastic. And I was like, Okay, I might be on to something. And then last night, it was causing him to try and go low a little bit, so we'll just have to tinker with it some more until we get it stable again.

Scott Benner 16:32
Okay. Has your mom because your mom was diagnosed in a different era of diabetes, obviously, but Has she had any insight that's been valuable? Or has it been the opposite? And what you're learning about Matthias is helping your mom or do you guys not talk about it?

Tara Caudill 16:50
Oh, we talk about it all the time. Okay. All the time. Especially when he was, you know, first diagnosed because I wasn't home. Like I saw them for the three days. And then I left Fort Jackson, South Carolina, and then I went to Fort

Scott Benner 17:09
tear you broke up

she'll be back. She's a little bit of a connection show. If I had a bugle I could play Reveley while we were waiting, but no, I'll try with my hands. Tara

that's all I remember. I don't know if that was right. Alright, she's gonna bounce back in a second. Hello. You left for Jackson?

Tara Caudill 17:43
Yes. So I left for Jackson. My bad.

Scott Benner 17:46
No, don't worry about it. I am assuming that they moved you into the middle of like the Texas desert or something like that. Or you're like out west or where are you at?

Tara Caudill 17:55
Now we're in a clean right outside Fort Hood.

Scott Benner 17:58
Okay. Well, they need better internet there.

Tara Caudill 18:01
They do. Yes, I agree. I just I just moved my phone to the opposite side of the house. So hopefully that'll help.

Scott Benner 18:07
Oh, no kidding. Okay, go. Well, I have my fingers crossed. But you were saying you had just left for Jackson, which made me think of Janet Jackson song where she calls herself Miss Jackson. And then you disappeared.

Tara Caudill 18:20
Yeah, so I left for Jackson and then went to Arizona. And I was there from, I think the end of February until the end of June. And then I finally came home the end of June of 2019. And that's when I really started to be able to dive, dive into the diocese care and my mom's my mom's perspective and her experience and everything with that. She had already told Chad so much. But even in a it where I got a little bit more freedom, I could call home every night if I wanted that there's just so much time that you know we had to do for learning our job and whatnot that it didn't really happen all that often. So when I when I was finally able to go home, I called my mom probably every day, or at least texted her and was like okay, I'm doing this just is like another witness while Chad was gone at work. Oh, hey, I'm gonna do I'm gonna do this. So

Scott Benner 19:24
if anybody has any reasons why these two shouldn't get married speak now for like, if anybody has a thought I want to hear it right this second. So you felt very uncertain for a while.

Tara Caudill 19:34
For probably the first few days at least? Yeah. Just where this was. This wasn't you know, helping my mom who could tell me yes or no, this was helping my two year old who could barely say hello. You know, so when Chad left for work, the first day after I got back home he he looked at me and he was like so I'm not trying to sound like I don't trust you. But please call me every time you're going to Bolus every time you're going to feed him. That way I can be like, yes, no, heck no. What are you doing? So on and so forth. And I was he, I was like, that's perfectly fine, because I don't want him to go into the hospital again. And especially, it'd be my fault.

Scott Benner 20:23
Your fault. Interesting. How long was Chad, the sole caregiver of the diabetes before you were home?

Tara Caudill 20:34
So February, March, April, May, June, but for four months, okay, give or take.

Scott Benner 20:42
Okay, yeah. So by then, it must have been incredibly difficult for him to just hand the thighs over to a different person, like, forget that was you just the two different person once he probably started feeling like I understand this a little bit. And I know how hard it was to figure out this much. And now she's gonna start over. And then the specter of what could go wrong just lives in your head. That said, that's interesting. You guys didn't actually get to do it at the same time. But looking back, do you think that was a benefit? Or do you think it slowed down your progress?

Tara Caudill 21:18
I think it ended up being a long term benefit, because it forced me to have to be able to eventually do this on my own.

Scott Benner 21:26
Okay. And you got you got the benefit of what he had figured out already. So you weren't starting at zero? You started a little bit in the On the plus side. But does what he says jive with how you think or do you have to remaster it for yourself she's gone again and that was such a good question.

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If you're looking for an online community, look no further than Juicebox Podcast type one diabetes on Facebook. It's a group that is private and has over 20,000 people in it just like you sharing support and knowledge. It's absolutely free. It's a great resource. I hope you take advantage of it Juicebox Podcast type one diabetes on Facebook. And don't forget, take that survey AT T one D exchange.org. Forward slash juice box. You'll help people with type one diabetes and you'll help yourself you'll even help the podcast T one D exchange.org forward slash juice box. Are you looking for the diabetes pro tip episodes look no farther than diabetes pro tip calm. You can also find them at juicebox podcast.com. You can find them in your podcast player and their extensive lists on the Facebook page Juicebox Podcast type one diabetes if you've been searching for those diabetes protip episodes the defining diabetes series The diabetes variable series ask Scott and Jenny there are so many resources around using insulin on the Juicebox Podcast you just have to know where to look alright, show's gonna start again. You're ready you know I'm going to get Tara back connection is going to be fine. Everything's good here we go

I don't want to forget the QUESTION All right. What I said was you guys should try talking off the top of your head like this for an hour it's not easy did hearing his thing make it easier? And what happens when not doing the bugle find your young kids. You wonder it's not happening. I'm just talking to myself because you're not ever gonna hear us

don't wake up didn't Tintin. Tintin. Tintin? That's the second part of it. I know this from Mash God, you know, man, I'm leaving the sun. Hey, Scott. Hey, get some tinfoil wrapped around your head.

Tara Caudill 24:58
Right. I think I I think what I'm gonna do, just to see if this will make it easier is I'm going to use my phone as a hotspot because I should still have zoom on my laptop, okay? And our hotspot right and laptop with my phone and try and jump on there and hopefully it won't, it won't keep disconnecting because we have T Mobile, and T Mobile is apparently not super good in this area.

Scott Benner 25:22
Perfect for you. So, right, um, do you didn't need to jump off and jump back on?

Tara Caudill 25:28
I'll see if I can sign in on here. Okay. And then

Scott Benner 25:33
I'd such a good question. Just read. I'm like just all I'm doing is sitting here trying to remember my question.

Tara Caudill 25:39
Okay. I'll stay quiet. No, no, no, no,

Scott Benner 25:42
I've already. I've already played Reveley on my hand bugle twice. So nice. As much as I can remember from Mash.

Tara Caudill 25:49
Oh, I used to watch mash sometimes.

Scott Benner 25:51
Yeah, you're young, you wouldn't enjoy it. I love the mash.

Tara Caudill 25:55
I just remember that radio was the only original character radar. Or radar doesn't radio. But he's

Scott Benner 26:02
not the only original character. Oh, you mean the only real actor from the movie? Actor? Yes. Yes.

Tara Caudill 26:07
Yeah. All right, let me see. Pull up my email here. Chris. My emails taking forever. Just box,

Scott Benner 26:16
click this link you're needing to my mom just texted me. How's the podcast? Not great. I'm gonna admit you, but we're gonna get some weird sound stuff. You should jump off on the phone now.

Tara Caudill 26:44
All right, what about now?

Scott Benner 26:46
Well, let's talk for a second to find out. Alrighty. Let me uh, let me ask my question again. We'll see where that goes. Okay, so I was wondering if Chad's experiences were helpful for you in the beginning, because sort of like a launch spot. But but then I was more interested in whether his stuff one to one translated to you, or if you had to kind of hear what he was saying, and then re engineer it so that it worked for your brain.

Tara Caudill 27:21
I definitely had to do some relearning just from growing up with my mom as a type one. One because now I was the caregiver. Or one of the caregivers. And with my mom, I wasn't I was, you know, I was there to help her if she needed it. But most of the time she didn't. So when it came to some of the advice that my mom would give, it wasn't that she was wrong. It was just That's how she had always done it. And she's a grown woman, not a, you know, a two year old. So there were things that we had to, you know, figure out, Okay, what if we take her advice, but just like re engineer it? Kind of to like use your words. So that it would so that it would work for Matthias especially when he was still MDI.

Scott Benner 28:09
Okay, so he it's interesting. So your husband has no background in diabetes at all. He at least knows your mom had it? And has it understands your way. Is Chad, like in a normal situation where all three of you are together? If this happened? Who would this have fallen to?

Tara Caudill 28:33
I think it would have been fairly split between the both of us that's that's how it is pretty much now.

Scott Benner 28:40
So you think even in that moment, you guys would have split the duties up? It wouldn't have been like here, this is more you or more him?

Tara Caudill 28:48
Yeah, I think it would have it would have still been 5050 as much as possible.

Scott Benner 28:51
Okay, cool. So you guys do everything like that.

Tara Caudill 28:57
With me everything with like life, the type one No, just like I think when I think when we recognize, hey, someone is more up to speed in this area, we kind of, we kind of let the other person teach us, you know, or, or vice versa. And then when it's time for the other person to step up to the plate, we're like, alright, you know, go out there and do your thing. And then

Scott Benner 29:21
you guys have a good relationship like this, the army help you with that, that idea of working in a team.

Tara Caudill 29:28
More so now because a lot of a lot of the ways that he talks, some of the just the lingo and just the way that his mind works now. He's been in for 10 years at this point. So now that now that I've gone through basic and the it and I've just been with my unit for a couple years now. There's conversations that we're able to have that flow more easily just because we are both in the military now.

Scott Benner 29:53
Yeah, I imagine you guys planning on having other children

Tara Caudill 29:59
so When Chad did his episode, I was getting ready to have our second born.

Scott Benner 30:06
Oh, baby. How old is the baby now?

Tara Caudill 30:09
He is six months old.

Scott Benner 30:10
Oh, good for you. It's exciting, or is it? A lot of work? And you're like, Oh my God?

Tara Caudill 30:17
Oh, no, it's it's definitely exciting. It is a lot of work. I mean, I've never had two kids before. So

Scott Benner 30:22
yeah, are you? Do you have a level of concern about your newest for type one? Or how does that strike you?

Tara Caudill 30:32
We really don't, I mean, we're aware of it. But it's, we're not plagued by the paranoia of it. And we're doing our best to keep it that way. When we found out that I was pregnant, we talked about doing the testing to try and figure out like, what, like, what chances he would have of developing it. And then we kind of just let the conversation go and just kind of enjoyed, you know, getting ready to have a second baby. And then after he was born, we talked about it again, and we we just kind of determined we're, you know, we're more aware of like the symptoms and kind of what to look for. So we weren't going to, we weren't going to what could be just wasting time, just waiting, you know, to end up having to take him to the ER. And that kind of came, that was one area where my mom was really able to help. Because when I was born, you know, it was pretty rare for a type one diabetic to have a healthy pregnancy, let alone the baby end up not having any complications or anything like that. So when I was born, and then as I started growing up, my mom would take me to the pediatrician. And she would ask, you know, what are the chances of, of terror developing type one. And my pediatrician always told her, there's a test that you can do to find out, but unless you unless you really, really want to know, she might never ever develop it, they said that there was probably like less than a 4% chance that I would ever develop it. So my doctor's advice to my mom was just enjoyed the time because if you do the test, and you spend all that time wondering, you're, you're going to be 70 And your daughter is going to be 50. And you're going to be on your deathbed going man, I didn't get to enjoy any of the childhood because I was just waiting for the tragedy, quote, unquote. And I'm almost 30 And I've, I've never in no way developed

Scott Benner 32:42
it. Right. So she just was able to take that advice and, and live that way. And you're gonna do the same thing. Cool. Oh, I listen. I think there's, there's a couple of different ways to think about it. And I feel like all of them are very valid. And that what you just described is one way that I hear people talk about it. So I think that's perfect. I was just wondering your perspective on it. That's a that's something so you guys have a young family, you've just really paid relocated to Texas. Do you think you're gonna get to stay in Texas? Or do you think you're gonna have to bounce again?

Tara Caudill 33:14
We'll have to bounce again. But we'll be in Texas for at least a few years. Okay.

Scott Benner 33:18
That's pretty cool. Is that just standard military life? That's never gonna change?

Tara Caudill 33:27
Uh, yeah, pretty much.

Scott Benner 33:30
And so. Okay, so Chad's active, so he might have to move around a lot, which makes you have to get find your way into the reserves wherever he lands. And are you in military housing? Or do you own your own house? How does that work?

Tara Caudill 33:48
We actually just bought our first house we closed on it this week. And you're

Scott Benner 33:51
in it right now.

Tara Caudill 33:55
Yeah, we're just waiting for our household goods. So we're we're still working with the air mattress situation and and all that good stuff.

Scott Benner 34:04
Is Matthias having fun. Is it like sleeping over for a while?

Tara Caudill 34:08
Yeah, he seems to be enjoying himself. We actually just got him his first actual like, big boy bed not toddler themed or anything so. So he's not sleeping in his little monkey sleeping bag anymore.

Scott Benner 34:21
What's he about? Like five or six now?

Tara Caudill 34:24
He's four. Now four.

Scott Benner 34:25
Wow. Why did time feel like it move faster for me then? Like I was just thinking about? I guess it was only 2020 when Chad was on. I see. I think I think ahead so much about the podcast in my mind. It's 2022 already. So I'm like adding two years to his age and thinking like he's gonna be five or six. Right? So he's four. So how's he doing? Like, how is how is diabetes going?

Tara Caudill 34:52
Ah, it it's going pretty well. He had his last endo appointment in Atlanta. It was As to it was last Friday. And his a one C I think it was 5.5, I think is what Chad told me. That's so cool. With like, I think like 80 to 90% time and range somewhere around there.

Scott Benner 35:16
I liked it. It's so much in the fives that you're like, I don't know, it's like a five and a half. Mr. Chad took him to his appointment. You were not with him was that? Does that kind of normal? Does just one of you do it? Do not usually both go

Tara Caudill 35:31
on normally, because the couple of times that I've had to take him Chad would be working at his recruiting station. And then this past time Chad had to take him because it was my last day of annual training with my unit. So I had to go there.

Scott Benner 35:43
Okay, so whoever's available goes, I Yeah, thinking I don't think Kelly's been to like, maybe three appointments ever. Like it just doesn't work that way for us. Like she's usually working and, and I'm doing stuff like that. So that's interesting. Like, you guys can just easily switch off and back and forth. So does he come home? And like, I guess not right, like things are going well, but it's not like he comes home and gives you the report. I guess he just didn't like, Go, is it kind of like that? Yeah,

Tara Caudill 36:13
pretty much. I mean, if if there's, there's always like the paperwork that the end knows will give, you know, at the end of the appointment. And so I might look over the paperwork, and you know, make sure that whatever prescriptions need to be renewed. We're on there and whatnot. But before we moved, we actually were pretty fortunate. And we got a buttload of pods and DEX columns, and we got a handful of, you know, new vials of insulin and stuff. So, so we were set for when we were getting ready to hit the road.

Scott Benner 36:44
I'm plus, no matter how good Chad is this, he's still a boy. So you have to double check on him. Because, right? I mean, we do we

Tara Caudill 36:51
know he, he's very much. So I cannot brag on Chad enough. I really can't. Whenever I tell people about our, you know, our little experience with masseuses diagnosis, I have to remind people if you'd like I was gone. You know, Chad really had to step up to the plate and make it work and he did in more ways than than I could have ever imagined. And so then when they came for my family day, right after with ISIS diagnosis, I could not hug him and hold him and just tell him enough I'm thankful that he is with irises dad and not some some other man who whether it be due to fear, or just a lack of concern would not have handled it as as well and continues to handle it as well as Chad does.

Scott Benner 37:42
I remember being really impressed when I was talking with him. And even your your recollection of it makes that more so for me. So that sounds very sweet. But you could kill me like six different ways. Right? How are they taught? You?

Tara Caudill 37:55
Know, that's not really my job.

Scott Benner 37:58
They don't make you understand that a little bit. Yeah,

Tara Caudill 38:01
I understand it. But I'm not. I'm not like boots on the ground. That's not That's not my

Scott Benner 38:06
alright, but I feel like if I ran it, you you would punch me in the face and I'd fall over? Is this true or no? Just like think you'd run away and be like, I'm trying to analyze data. Could someone stop this guy from running it? Throwing my clipboard at you I've analyzed the situation and someone with a gun better get over here. Right?

Tara Caudill 38:31
No, like real talk. Like if it's if the fight is getting bad enough to where I have to pull out my rifle, then we're losing. Now not because, you know, not because, you know, I don't even know how to describe it. But that's that's just not my I'm not outside the wire

Scott Benner 38:49
when the people have to go find their gun. And it's under something that those are not the people you want. And

Tara Caudill 38:57
exactly everyone else has died.

Scott Benner 39:00
Under the bar. Hold on a second. Can everybody wait? I don't remember where I put it. Yeah, I have to save this thing I'm working on I want to lose all this work. Right. Now. That's the military really is just like a big business, right? People just do different things. And there's different sections and people who don't know one thing about the other side of something else. Yeah, I mean, it makes sense. Just that you know, in your mind you're like, it's it's hard to imagine for somebody who's never been involved in it.

Tara Caudill 39:29
In the movies, everyone, everyone in the movies is infantry. And that's just not true. I mean, we're all taught, you know, basic combat training, but

Scott Benner 39:37
Right. Gotcha. Maybe you could get out of a scuffle on a 711 Okay, better than me. Yeah. Yeah, I could do that. I could do. Yeah, I don't know. That's kind of there's something great about just understanding how to protect yourself a little bit. That is a it's interesting to me. Do you think that little Going forward, I know this is tough, you're such a young family, but Mathias can't join the military right? Now, do you think that's gonna be an issue? One day?

Tara Caudill 40:12
I have thought about it. He has definitely pulled out like his little Nerf guns and be like, Mom, I'm a soldier like you and daddy, and it like, warms my heart. And then you know, you kind of have that moment where you're like, but you can't really be one. But he's four, just kind of, yeah, you just kind of let him run with it. I mean, we definitely don't want to be the parents who go, you know, you have type one, like, you can't do this, like we let him. We let them do stuff like every other four year old and we just try to manage it so that he can do all of those things. And if we have to call him over to give him a tab or something, it's two seconds out of his play time. And then he just goes right back over.

Scott Benner 40:51
I imagine there's a time when he'll have better understanding that you'll that you'll say it to him differently. But I have to agree, I don't know that trying to explain to a four year old that you can't serve in the military, because the diabetes is is a valuable use of anybody's time or effort. Yeah, cuz he's not going to take it correctly. And then he's going to start wondering what else he can't do. And it just happens that he picked the one thing that he can't do like to ask you. I mean, you don't want to give him the feeling. There's so many other things because I can't think of anything else really. You know, even the being a pilot thing seems to be going the right way.

Tara Caudill 41:28
We have told him that. As he went through a big plane phase, we live near an airport in Georgia. And every day is like mama has a play. And I'm like you want to be a pilot. But you go ahead and you be a pilot. He's like, Okay, I'll be a pilot.

Scott Benner 41:42
So great. When they're little, you could pretty much get them to say you're doing thing. You want to be a pilot was

Tara Caudill 41:48
in? He wasn't. We got him enrolled into like a taekwondo class last October. And so he did taekwondo at this at this studio. Not too far from our house up until we moved. Was he enjoying it? Oh, yeah, he loved it, he was actually able to be accelerated so that he could get his tiny Tiger black belt before we moved. Oh,

Scott Benner 42:14
that's cool. tinies Hydra black belt, probably the name of the episode. That's fantastic. Amazing. So he's just out there rolling around with other four year olds, and they're like working on moves and trying to understand like the real basic stuff. That's amazing. Yeah. How was that on his blood sugar? Oh,

Tara Caudill 42:35
it was it was pretty well, we definitely tried to do our best to monitor when he first got there, just because we didn't know exactly how the class was going to work. But uh, you know, there would be times it was only for 30 minutes. So I mean, we weren't able to see any super long term effects, because he would be running for an hour or anything like that. But especially if there were days where they did the obstacle course that they had set up for more than 1015 minutes, you could sometimes start to see, okay, we got to, we got to pull back or push forward on the Basal just kind of whatever, especially with him being so small.

Scott Benner 43:14
He has little, how much does he weigh?

Tara Caudill 43:17
He's around 40. I think 40 pounds now.

Scott Benner 43:21
Oh, I remember. My kids being small like that. It's so nice. It's hard to to look, I'm starting to get to that age where it's like, pretty obvious. I can't have kids. You don't I mean, like, just because of my age. And I don't I don't want to be 75 If someone's like, you know, assuming I can make it to 75. I don't want to be 75. It's somebody like high school graduation. It's sad. Like you think like, oh, like I never thought we were going to have more kids. And yet now, knowing that it really can't happen or won't happen is it makes you think back to all this stuff. It's interesting to hear you talk about do you think he'll keep doing the taekwondo who you find we look for a dojo in Texas.

Tara Caudill 44:02
Yeah, he said he wants to keep doing it. So I'm actually trying to get into jujitsu once we get settled down. And, you know, like, redo our budget. And so if he doesn't want to do taekwondo, you know, he has told me he wants to try jujitsu. Not that he knows what the differences are. But uh, they have kid classes at the gym that I was looking at. So if he wants to try that he can do that. He said he wanted to do a dance class at one point, and I was like, you could but we've already paid for taekwondo. So let's just keep doing that. Okay,

Scott Benner 44:32
let's finish something up first, and then we'll start Yeah, thanks. Oh, wait, do you see I was just telling. I was just yesterday on the phone, ordering training equipment that my son needs. And the guy and I'm looking at the price I'm like, oh my god, like I'm like getting ready to give the guy the credit card. And I just said to him, he's a younger guy. And I was like, Look, you're gonna have kids one day and they're gonna want to play baseball, maybe and Just remember, if that happens that 20 years later, you're still going to be involved in buying stuff for baseball, standing on fields getting weird tans, not going on vacation, because that's when baseball is played. I was like, that's a big step. I was like when your kid asks for baseball, like really make sure you mean to say yes. Because it's like a lifelong if you keep playing. It's a it's a lifelong, you know, commitment. I like the idea about jujitsu like you just like skip a class and go on vacation and come back and do it again. That sounds that sounds enticing to me. I'm starting to think if I could go back in time, I'd be like, what about this? You know, like, Would you like to look over here instead? I didn't realize when I was young that baseball gets played when everyone's on vacation. So if you play baseball, you don't go on vacation? Like little summers playing baseball. Yeah, you know what I mean? You're just like, wow, and plus my arms get really tan. And then my shoulders are white. I look silly when I take my shirt off. So anyway, well, you guys have a really, I mean, for as crazy as your launch into this was, now's going pretty smoothly. So what is it you're doing that's, that's working. So on a five, five for a four year olds pretty impressive.

Tara Caudill 46:21
Having your podcast in your resources has definitely been the biggest help Chad introduced it to me when I was in AI, T, back in 2019. And so and then he got Messiah set up on the Dexcom. And so he introduced me to like the share app and everything with that. But uh, I was gone. And in class so often for learning my job that I didn't really get to watch his sugar throughout the day. And so I was more. It was more just kind of Chad learning stuff at home and implementing it, you know, like, the same day or shortly after, and then telling me, like, Hey, I learned about this today, I'll never forget when he told me about Pre-Bolus thing. It rocked my world really how it rocked my world. Because with my mom Pre-Bolus thing was never a thing. It was just it wasn't like a bad word or anything. It was just, it wasn't a concept. Yeah. And so then when Chad told me, he was like, hey, you know, like, I heard this podcast and this guy talks about Pre-Bolus. And I was like, What in the world? What is that? He said, You give the insulin before they eat, and you try to time it so that when the insulin starts working, it kind of like fights the carbs in the food. And I was like, That's genius. It's like, why is this not a thing? Like, why don't they teach you that coming out of the hospital? He's like, Well, he's like, I kind of get why they don't do it. But it's definitely more useful than waiting for him to go high. And they go, Oh, okay, now he needs this much. And then and then just missing it all together. Yeah. So then Pre-Bolus He was definitely the biggest help. And we got him on the Omnipod dash, like the week I got home from it. So that was my first appointment that I went to and actually funny story. Jenny Smith was the one who taught us and trained us for the Omni pod.

Scott Benner 48:24
He used integrated for that.

Tara Caudill 48:27
I had no idea what it was at the time. She was just the one who was at a children's hospital of Atlanta. And we walked in for our appointment to get him set up on the pod. And she's like, hi, you know, I'm, I'm Jenny Smith. I'm going to be training you for the Omni pod today. And then it was probably a week or two later. I guess Jenny was on one of your episodes. And Chad was like, I think this is the same Jenny who helped us with Don.

Scott Benner 48:52
I have to tell you like what it's very likely not Jenny doesn't live in Atlanta. Reality Yeah, you might have a different Jenny Smith. Is there another Jenny Smith out there that works in diabetes? Please contact me. Super interesting episode. Yeah, Jenny lives in Wisconsin.

Tara Caudill 49:11
I thought maybe she had just like traveled for something and was in the area or some I

Scott Benner 49:15
don't know. Tiny woman. Very happy. Jenny was in it. Yeah, I'm gonna ask her if she was in Atlanta doing something. And that was, that would be it would

Tara Caudill 49:25
have been. It would have been the summer of 2019 All right, I can July she's

Scott Benner 49:30
gonna laugh she laughs every time I asked her something so she'll laugh. And then she'll be either telling me like that was me or no, that was not me. And I will let you know.

Tara Caudill 49:38
There's gonna be more intriguing if it wasn't her because I'm gonna be like, Oh my gosh, she was that

Scott Benner 49:43
it's another Jenny. And she did she worked for the hospital or for the for Omnipod

Tara Caudill 49:51
I'm really not sure that was the only time that we ever met her. Yeah, every every other time we went there. It was either his regular and no or one of the like.

Scott Benner 50:00
All right, so I'm going to tell you, it's likely not her because she doesn't work for an institution. And she doesn't work from the pod. So Gotcha. If that is fascinating, the other Jenny Smith, I swear it was a Jimmy Smith, we might have knocked off the title of the episode and come up with another one. Interesting. Although

Tara Caudill 50:19
I remember she she was also on the Omni pod because Matthias was trying to mess with her PDM and we're like, buddy, like, No, dude, don't do that. You're gonna mess it up. And she's like, Ah, he can't hurt it. And I was like, because at first I thought it was just like a demo Omnipod that she had and then it and then I realized, no, it was actually her pump. And I was like, okay,

Scott Benner 50:37
alright, so I'm now googling because I'm fascinated. Was she? Does she have dark hair? She did. Yeah, I don't. It's so that's definitely not Jenny. Jenny has lighter hair. But I'm looking at a LinkedIn profile. Jenny Smith, clinical services manager, diabetes nurse educator, Georgia, clinical service manager for insolate starting in 2019. insulet. Makes Omni pod. Okay, Jenny, if you want to be on the podcast, and you ever hear this, you can come on because now I want to talk to you about this.

Tara Caudill 51:12
This is like Jenny inception. What is happening?

Scott Benner 51:17
Are you just a you're not just over there trying to name the episode at this point, are you? I'm not know. Because Jenny Inception is tight. That's gonna be that one I wrote down. You knocked off the little tiger blackbelt blend. But anyway, now I'm just interested in the power of the podcast. I'm not now I'm interested. If I hear from Jenny Smith, who works for Omni pod. I want to find out if it reaches her or not. Isn't that fascinating? Okay. Yeah. And this kind of be a common name No, Jennifer might be. I mean, Jennifer was pretty

Tara Caudill 51:51
common for me growing up and then Smith, it's just a common last name all together.

Scott Benner 51:55
Yeah, I can't wait to tell Jenny about this. She's gonna be she's gonna be just, like, enthralled with this idea. So your suggest Pre-Bolus thing was a big deal to you? Very much so and not something anyone else had talked to you about? Okay. And now moving forward. I mean, a five, five indicates a really good grasp, or you're having a lot of lows. And you're not telling me but I don't think that's the case. So now, do you have a firm grasp of what you're doing?

Tara Caudill 52:27
I like to think so. Yeah. I

Scott Benner 52:29
mean, you have to if you're five, five. I mean, he's not eating like sawdust or something. Right? Like he's eating. You're not feeding them. Just like, you know, here eat this. It'll fill your belly. It's like real lazy eating like a fairly like American. I mean, you're in Texas, right? Like you probably eat. Like you probably kill things with your hands and then cook it on a grill and stuff like that. Like you've been in Texas, five seconds. You're like, I don't know what they do here.

Tara Caudill 52:55
We were here once before Chad. Chad's actually been stationed here before, but I only lived here with him for two months. And then we PCs to Hawaii where Matthias was actually born.

Scott Benner 53:05
That sounds better. Not that Texas. Sounds bad. But Hawaii sounds great. Yeah, okay. So I mean, but he's eating a fairly American diet, I imagine.

Tara Caudill 53:16
Oh, yeah, we do try to keep it more healthy. Like, instead of just shoving glucose tabs down his throat and figured out we could give him a handful of grapes, like however many. And it essentially worked the same way. So that way, he wasn't getting district sugar. He was also getting some nutrition. So try to sneak it in when we can.

Scott Benner 53:35
Right. I heard somewhere recently that that grapes hit pretty hard on the glycaemic their glycemic loads pretty hard. Where that might have been anecdotal. But that makes sense to me that it would work for a low, and if he can eat them, then cool. You know? Yeah, I agree better than a than a tablet. But I mean, seriously. So you have like stability overnight at a lower number, I'd imagine right?

Tara Caudill 54:02
Yeah, with the exception of I think his Basal were just in that funky time where it might need to be adjusted again, for a while it was at about a quarter unit throughout the night. And that seemed not I'd say about nine times out of 10. That seemed to work unless we just missed, you know, some protein or fat from dinner. And then he had to fight that off forever.

Scott Benner 54:27
But I'm saying like, generally speaking, you see the bill. I'm just guessing, do you because I'm maybe I'm wrong. But do you see stability overnight more in the 80s and 90s than not? Yeah, I would say so. Yeah, I mean, because five, five, the way you get to a five five is pretty is pretty common. You have to have, excuse me overnight stability. That's more in the 80s. You have to not see a lot of spikes at meal time. And you have to be in a situation where you're not correcting a lot of lows. Food. Does that describe your life? Yeah, pretty much. Yeah. Wow, you got all that from the podcast? Yeah. Cool. That's a really amazing. I don't even know.

Tara Caudill 55:14
Chad also found the sugar surfing book a long time ago. Okay. And so and so he read that and that really helped him good. And then we actually learned what I really learned the other day, the doctor who wrote that book. He's actually just over in temple, which is like, 45 minutes away from here. So we're definitely going to try and get him as the diocese and No, but

Scott Benner 55:36
that's cool. Yeah, he's in Texas. He was on the show, like at the very beginning of the show. I remember that. Yeah. i It's been like, it's got to be seven years ago. But I always enjoy telling the story that like he was only on because listeners asked for him. Like I didn't I had never heard of him before. Not to say that. That's a distinction, but I just didn't know who he was. And a couple of listeners that can you get this guy, he wrote this book. And he comes on. And he's talking and I remember being 1015 minutes of the episode, and just like blurting out to him, like, you do what I do, you just call it something like I was it struck me in that I was like, oh my god, like, he knows this too. I was like, This is so cool. Get you know, so really interesting, and, and, by all accounts, a lovely man, so that if you could get him, I think that that'd be really great. I mean, he you'd probably he'd walk in, you'd walk in there, and he'd be like, you guys know what you're doing? And that'd be that. But no, I mean, now that you have some proximity to him, that'd be really cool. Excellent. Well, I'm just thrilled you guys are doing well. Like your story's incredibly uncommon in the way it happened. But it's fascinating and in how quickly you guys pull it all together. You know, like, really? It's, it's, it's laudable. Do you ever, like sit back and take a minute to be proud of yourselves?

Tara Caudill 56:59
We have done that before. Yeah. I feel like if I get wrapped up in how well things go, then the next minute it just, it gets out of hand. Because some days you have you have like a handful of days where you almost start to feel like yeah, I really, I really got this down like, I am the PDM you know, I am the insulin and then the next day, it just kicks you in the butt and you're like, I should not I should have just let it be. I should just wave that it is a web by should have never made a big fuss about it.

Scott Benner 57:31
You feel like the world is seeing you celebrate that. And karma is like hold on. We'll just We'll fix this up for you. Just watch this. People say that. People say all the time, like the minute I take a screen capture and I share something with somebody it goes wrong. And I'm sure that's just you know, Murphy's law. But uh, you know, I don't imagine that you celebrating what's going on is, is actually leading to another by the way if anyone thinks that I think you should talk to a therapist, I believe there's there's a that's a mental illness. So you, you can't control the world with your thoughts if you could be much taller and more handsome, and younger. And there'd be a lot that would change. If I could just change the world with my thoughts. I think. That's cool. You guys are just like a great like, young family success story. It's really, really, really great to hear. Is there anything we didn't talk about that you were hoping we would?

Tara Caudill 58:29
Oh, I wanted to let you know that when our second son was born. We named him Scott.

Scott Benner 58:35
Get out of here. Are you serious? You're lying. No,

Tara Caudill 58:38
his name is Nate Gabriel.

Scott Benner 58:40
I knew you were lying. I knew it and I let myself be excited. Anyway. That was mean, Tara

Tara Caudill 58:47
told me to do it. blame him. Jewelry. I said this. I said it as a joke last night and he was like, No, you got to do it. I love it. You tell him

Scott Benner 58:55
I said I told him I said that was hard as you said and I was like she's kidding. And then I'm like What if she's not kidding and I don't act really happy about this.

Tara Caudill 59:13
Jen says hi by the way. Oh

Scott Benner 59:14
yeah. Thanks a lot. That's hilarious. I'm so sorry. I couldn't help it. You did such a good job selling it Are you good liar? Generally? No, not at all. You really leaned into You're very good. Excellent. Oh, I'm smiling so much. That's so funny. Good. Oh, that's fantastic. You guys plan that out? I appreciate that. I do no problem. We're here for us. God I can see it that you guys are just there as my little support system I appreciate. I I can't tell you how amazed and thrilled I am for how well things are going for you guys and I know your your start was rocky but you guys really are are doing a great job. Just remember tell Chad I said kid's going to start growing and he's going to get hormones and things are going to happen and he just has to you guys just have to stay, like just flexible and just move with it meet the need, and you'll be okay. You know, I will definitely pass that on. Yeah, but you got some years before that kid starts popping up and really, I think putting on the bulk wait. I don't think he's gonna think he's gonna be like a little killer when he's seven. So I think you'll be okay for a little while. But that's really something and congratulations on the Baby. Baby. Gabriel. Just, I knew even with like, there's no way you were gonna go to something not traditional, like you guys have like, I mean, those are fairly biblical names that you've chosen, right? Yeah, you weren't gonna go to Scott. I know.

Tara Caudill 1:00:48
Damn it. I do have a cousin named Scott.

Scott Benner 1:00:52
One little bit I should have just let it be. Care about your cousin at all? What do you think of that? diabetes, then tell him I really like that.

Tara Caudill 1:01:06
He doesn't, but my mom is the middle child of three. And she has an older sister and a younger brother. And neither one of them have ever developed it. She's the only one on my side of the family that we have ever found that has it?

Scott Benner 1:01:19
I know. We're never going to know the answer to this empirically on the podcast, but and I don't wish this on you. But I wonder if it's gonna skip generations in your family? Like, I wonder if you have no idea. Yeah, like, I wonder if you'll be the grandmother of a type one one day or something like that. Not that I hope that happens. I'm just I, you know, sometimes it's you wish you had more time on the planet. So you could step back and see how things really, you know what I mean? How they transpire? I feel like that, but maybe other people don't.

Tara Caudill 1:01:49
Remember, I remember Chad told me when they were in the diabetes class in the hospital. Like the very first thing he told Chad was this is not your fault. You did not, you know, pump him full of sugar and kill his pancreas. They were like this, chances are this was going to happen. We just unfortunately didn't know. And another thing they told him was at that time, at least, I don't know, with all the research that's been coming out that in the past couple of years, that they believed that for a person to be able to develop Type One is that the gene had to come from both parents.

Scott Benner 1:02:28
Really, but that that's the case.

Tara Caudill 1:02:32
That's what are understood at that time. Anyway, when he was first diagnosed, that's what our understanding of it was. So before I heard that I was I was still at Fort Jackson. And then when we found out and I had, like, my, I had my breakdown moment, I thought that I gave it to him. And I was I was devastated. I was like, you know, of course hindsight, there's nothing that I could have done anyway, or that we could have done. Like, once the dial started being turned, I mean, he was developing it. But at that moment, I was like, Oh, my God, like, what did I do? Well, they thankfully didn't stay like in that in that dark place for very long and was able to be picked back up by like our friends and family and whatnot.

Scott Benner 1:03:17
Yeah, that just makes me super sad because you were disconnected by distance. Like, I mean, I get that you would feel that way but didn't feel that way and not be able to see him or hold him or talk to him or anything. Like had to add to the despair, I would imagine.

Tara Caudill 1:03:32
Yeah, it was not fun.

Scott Benner 1:03:36
Wow. Oh, you guys, your story's terrific. I appreciate you fighting through the technical stuff. And I actually enjoyed the birds. You're the you're now the third episode with birds in the background. I have to tell you, I find it relaxing. So nice. There they are. I can't wait to tell Jenny about this.

Tara Caudill 1:03:58
Please like message me when you talk to her?

Scott Benner 1:04:00
Yeah, I'm gonna tell her that you named your baby after No. No, do it. That way she'd be so happy if somebody did that. It would break her heart if I told her no. Oh, yeah. Okay, don't but I can't wait to tell her the rest of this. And I genuinely hope that this other Jenny Smith comes on the podcast at some point. Yeah, I really know I want that very badly. All the sudden that's the most important thing in my life. Give them both on at the same time. Well, I seriously so look, this is not a like a flex, it would be a weird flex if it was but I could send an email and find Jenny Smith and get her on the podcast but I don't want to do that. Like I want to see like I want to wait like this go up months from now and like sometime in 2022 Like I just get this email and it's like Hi, I'm Jenny Smith. I'm gonna be like yes, but I feel like like we like one some long game so All right. Well, I will let you go. I'm assuming you have a home to build and and a life to put together there in Texas and I want to wish you a lot of luck. Seriously,

Tara Caudill 1:04:59
I appreciate you taking the time for all this Scott I know that you got a lot going on and I know this is kind of like your gig but I I really do appreciate being able to share share my side of it since Chad got to share his

Scott Benner 1:05:14
Yeah, no I thought it was important I remember back when he was talking thinking that I would want to hear from what it was like to be on the opposite side of that phone call. So yeah, I'm thrilled you did it via Don't thank me. Like, you know, people like you don't come on the there's no podcast, so I really appreciate it. I hope you have a great day.

Tara Caudill 1:05:34
You too, Scott. Thank you.

Scott Benner 1:05:39
A huge thank you to one of today's sponsors, G voc glucagon, find out more about Chivo Kaipa pen at G folk glucagon.com Ford slash juicebox. You spell that? G VOKEGL. You see ag o n.com. Forward slash juicebox. And I'd like to of course, thank Tara for coming on the show and giving us her side of that diagnosis story. Thanks so much for listening. I'll be back soon with another episode of bugling with Scott with his little mouth bugle. That would not be a very good podcast.

If you're enjoying the Juicebox Podcast, please share it with someone who you think might also enjoy it. And don't forget to subscribe and follow in your podcast app. Thanks so much for listening today. I'll be back very soon with another episode of The Juicebox Podcast.

#609 Rocky and Bullwinkle

Lacie is an adult living with type 1 diabetes.

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
Hello friends, and welcome to episode 609 of the Juicebox Podcast.

On today's episode of The Juicebox Podcast we'll be speaking with Lacie. She is an adult with type one diabetes, who has a very different diagnosis story. Please remember, while you're listening that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan are becoming bold with insulin. I'm not going to ruin the episode for you. But Lacey was involved in a trial as a child that identified her as having antibodies for type one diabetes. So she had five years to get ready for her diagnosis. Her story is terrific. She's Canadian, so you know she's super nice. All you got to do now is settle in, get your earphones just right. Get them where you like them. And let the story unfold. If you'd like a simple and easy way to support people with type one diabetes and support the Juicebox Podcast, take the survey AT T one D exchange.org. Forward slash juicebox. It'll take you less than 10 minutes. It's completely HIPAA compliant, absolutely anonymous, and it will actually help people.

This episode of The Juicebox Podcast is sponsored by Omni pod makers of the Omni pod dash, and the Omni pod promise. Learn more at Omni pod.com forward slash juice box. And a little later in the show. I'll tell you all about the dash and the promise. The podcast is also sponsored by Dexcom, makers of the Dexcom G six continuous glucose monitor. You can start today@dexcom.com Ford slash juice box get the CGM that my daughter has been wearing since she was a really little I probably should figure out exactly how long she's had it. But I mean, she was tiny. So maybe 10 years at least probably more. I don't know. I'd have to look. Anyway, that thing's Great. Dexcom comm forward slash juice box.

Lacie 2:23
My name is Lacie. I live in Ontario, Canada, and I have had diabetes for 20 years.

Scott Benner 2:30
You know, see now I see. We just had 20 minutes worth of technical problems that you put up with nicely. I couldn't understand why you're being so kind.

Lacie 2:41
And now you're blaming it on the fact that I'm Canadian. I'm not

Scott Benner 2:43
blaming it. I'm saying a nice thing. Right? I love a country that only stabs each other no shooting. I like that.

Lacie 2:50
Well, I wouldn't be too quick to jump on that. I used to live in Toronto plenty of people got shot Toronto. It's

Scott Benner 2:56
funny when I if I joke like that somebody who's ever been there. And I only say there now because I'm super aware of a person who was on recently who said they live in Toronto. And now I want to say it like T R and T Yeah, oh,

Lacie 3:10
people tend to remove letters from Toronto. I usually say Toronto, but a lot of people say Toronto or Toronto or something like that. It's just Toronto. We're lazy. We're lazy with our syllables.

Scott Benner 3:21
I loved it. I was like Toronto. Damn right. I live in guaranty I don't even know how to take words out of New Jersey or letters out in New Jersey. Okay, so you were how old are you now?

Lacie 3:31
I am 31

Scott Benner 3:33
she diagnosed in year 11 Yes, and you basically lived on the rim of the earth. Just wait. So probably no health care just a walrus took care of you or something like that. How did it go?

Lacie 3:44
Ah, no, actually, I I had quite a robust health care system nearby me. And actually, this was kind of what I wanted to come on here about because my diagnosis story didn't actually start when I was diagnosed it started when my brother was diagnosed.

Scott Benner 4:01
I know I'm excited and thank you for saying about so that was really great. He said about just now and it was so Canadian and now I'm just all warm inside non-reading So

Lacie 4:12
I didn't realize that we set it any differently than I always hear the jokes about people saying a boot but I didn't think it was that

Scott Benner 4:19
like you didn't do you about like you just okay yeah, it's fantastic. I love it it's probably from years and years of running from grizzly bears. I would think it's probably changed your voice boxes because all

Lacie 4:30
the money yeah just for the extra oxygen that needs to get in for running from you know deadly predator so

Scott Benner 4:34
it makes more sense. Yeah, least you don't have snakes. You don't have

Lacie 4:38
nothing that'll kill you now. Yeah,

Scott Benner 4:40
that's how I measure snakes. Some people measure them in meters. I measure them and if you're going to stiffen up and die after they

Lacie 4:48
bite you know our snakes are nice.

Scott Benner 4:51
Canada land of nice snakes. How so your brother has type one as well as he older or younger than you.

Lacie 4:58
He is two years older than me. So he was diagnosed when he was eight, and I was six.

Scott Benner 5:03
Interesting. And how did you just always? Like, did your family just always assume you were going to get type one? Or what do you like your no.

Lacie 5:13
So back, this was pre TrialNet days, but when my brother was diagnosed, my dad is also type one. And when they saw, okay, father's type one, first child is type one. There was a study going on in England and my brother's endocrinologist really wanted to send my blood as part of that study. So they hooked me up to an IV for I think most of the day, they were drawing intravenous blood samples every two hours, I had to have a shunt in my arm for pretty much most of the day. And they did all these tests and sent it off to England, and it came back and they're like, Yeah, give her five years. She'll have it.

Scott Benner 5:58
British. Seriously, they're always yeller.

Lacie 6:04
Yeah, I I've tried to find what the study was. I can't find it. But I also might just not be very good at googling.

Scott Benner 6:12
Yeah, though, so 20 years ago. I mean, it's sort of a no brainer, right? Your dad has it, your brother has it, they're like, if we're gonna find out if this thing works or not, we'll definitely take Lacey's blood. And I'm assuming like, if you had a pet Beaver, it would also have type one diabetes sounds like everyone in the house did.

Lacie 6:28
My dad, my uncle, my brother, and I all have type one. Wow,

Scott Benner 6:33
hey, is your mother. Does your mother have any autoimmune issues?

Lacie 6:38
Her autoimmune issues didn't show up until she was well into like her 40s and 50s. And she ended up with hypothyroidism. Which I also have. And my dad also has

Scott Benner 6:50
I'm starting to think that people with autoimmune issues put out a signal that other people with autoimmune issues pick up and we don't realize that but we're like, like little beacons, maybe. Wow, that's, um, look at you. That's crazy. So your uncle, your brother, your father yourself? Yes. All have type one eat 20 years ago, before anything like trial that exists. A doctor says, Hey, I think if we get your kids but how? Why did they have to take it the way they did?

Lacie 7:17
I have no idea. To be honest. I just remember being hooked up to this machine. I couldn't move around. And they kept bringing med students in to talk to us and asking these med students all these questions. And I remember my brother to smartass that he is sorry, cursing, sorry. answering all the questions before the med students could

Scott Benner 7:40
see understood type one better than they did?

Lacie 7:42
Well, yeah. And at that point, they were asking questions about you know, our history, like our medical history, our family history, stuff like that. So he was just spouting off all the answers before they could get it out.

Scott Benner 7:53
It's interesting that as time passes and technology, even medical technology gets better and better. Like it sounds like they were basically like they tapped. Like they wanted to get the blood right from your heart or something like that. Like it was just like, and now they just take this little it's

Lacie 8:08
just a finger poke. I remember when I was a kid going to diabetes clinic when they switched over from an IV blood draw to get your a one C to A finger poke to get your a one C and how excited I was.

Scott Benner 8:19
Bet you were that you were I know Arden gets the when she does the agency in the office. They do like it's a pretty heavy poke like they do your thumb usually because it's juicy here. And and it's a pretty big drop of blood compared to like what her contour meter uses. And she's always like, wow, like even that seems like vicious to her. I would imagine having an IV put in just to get your agency done, like how much blood did they need back then to do your agency a lot, I guess.

Lacie 8:47
Oh, they took full vials, I remember, I went to it was called the pediatric medical day unit in, in London, Ontario, call out to the London Health Sciences Center. Because those guys are amazing. They'd bring you in for your appointment and they would take you in do your blood draws and do your pee in a cup stuff. And then you wait right there while they did all the laboratory and then you'd go in to talk to the doctor. So you didn't have to go for multiple appointments to get, you know, the chemistry done or anything like that. And it was it was actually pretty, pretty. A lot of blood. I remember at the beginning it was a lot of blood. And then slowly it became less about the blood and more about peeing in a cup. And then they they, when they did the a one CS they had to almost like it wasn't a drop of blood on a thing they had to like, gouge your finger like they kept running this plastic thing over your finger and like milking it for blood to get a bunch out into this little thing but they still just poked your finger so it was better than an IV drop but not by much.

Scott Benner 9:50
My wife just bought these kits on Amazon to figure out what your blood type was. She thought it would be fun. She's a very sciency person. So she saw it online. She's like, Look how interesting they are. And she bought a bunch and all The rest of us were like, We don't care what blood type. And it was a similar thing like you needed, like a fair amount of blood, but it was from a finger stick. And we're all just sitting around this weightless round table by our sofa. Like we're all just kind of around the table bleeding everywhere. Just ridiculous.

Lacie 10:17
Yeah, that was pretty much what it was like it at clinic. And

Scott Benner 10:21
now I forgot what my blood type was. So that was definitely should have written it down. So how old are you when this happens? They draw that blood and tell you you're definitely I was six. And you didn't get it until you were

Lacie 10:33

They said five years and it was five years almost on the diet. Wow.

Scott Benner 10:39
Okay. Did you live every day thinking you were gonna get type one diabetes? Or do you were there? Absolutely. Really?

Lacie 10:46
Oh, yeah. I was convinced anytime I got sick. Like if I had to go home from school because I wasn't feeling well. I would tell all my friends like, oh, yeah, I'm probably gonna come back with needles.

Scott Benner 10:57
I gotta go. I gotta pick some diabetes up at the hospital. Yeah, pretty much. Wow. So impactfully negative positive?

Lacie 11:10
Ah, hard to say. I mean, because I was so like, I guess you could say prepared, like, I knew this was gonna happen. I had already kind of gone through whatever grief stages I needed to go through before even getting my diagnosis. So when it came time for me to, you know, get my diagnosis and going into the hospital. We already had all the answers. So we just kind of give us the prescription for the insulin and send us home like we didn't really need or shouldn't say need. We didn't really want to stay for any of the additional lessons or stuff because I mean, my parents had already been through that with my brother. I had already kind of gone through it just from watching my dad and my brother with all their stuff. I remember, on the day I got diagnosed we actually had the fight with the ER doctor just kept repeating like call this doctor who was my brother's endocrinologist at the time, called the doctor. Tell him Lacey's diabetic, he'll come down and the doctor was like, There's no way you could know that this just you guys are just, you know, overreacting. It's fine. It's like, call the doctor.

Scott Benner 12:24
They'll come years ago, we send some blood to jolly old England. And I'm telling you right now I have type one diabetes. Let's get this thing going. What was your symptom? Did you catch it super early,

Lacie 12:34
super early. So I never actually had the extreme thirst and frequent urination and all that that you hear about with a lot of people. My family just made it a routine to test my blood sugar whenever I acted differently than normal. So if I was sick, I got a finger poke. If I had some sort of outburst, I got a finger poke. We were at my grandmother's house, and we were playing a board game. And apparently, I jumped across the table and tried to strangle my brother. So after that, my grandmother was like, Well, time to stick your finger and I think I was 17 at the time, which is what to you guys. 17

Scott Benner 13:19
Do you want to bring up the

Lacie 13:20
300 I've got the little conversion chart on my desktop right now.

Scott Benner 13:25
So have the conversion chart that's available at Juicebox Podcast comm

Lacie 13:29
i i Do I have the conversion chart available at juicebox podcast.com/conversion.

Scott Benner 13:33
Lazy job. Very good job. That was excellent. Are you tapping something on the table or fidgeting with your hands?

Lacie 13:43
I'm sorry, I was probably rocking in my chair.

Scott Benner 13:45
Okay, stop doing that. No, I'm just kidding. Just please. A light right now people listening to like, how did he know that there's this light tapping in my ear. And it's making me mental or mental or so tell me again. You were what you're

Lacie 14:02
eight. I was 11 at this time, and I was 17 in millimoles, which is 306 According to

Scott Benner 14:09
and a little surly, apparently.

Lacie 14:11
And I was grumpy. I was very cranky. And so they got that test and my grandmother called my dad and he asked if I had any other symptoms my grandmother's like, no, he's like, Okay, well, when I get off work, we'll go to the ER. We went to the ER but because I was still honeymooning at that point, by the time we got to the ER my blood sugar was back in normal range, I would imagine. Yeah. Which is where the the argument with the ER doctor because there's none of my tests

Scott Benner 14:42
perfect blood sugar, and they're just like, you don't know what you're out of your mind. People are crazy. That's probably Yeah. Yeah. What was your father when he was diagnosed?

Lacie 14:51
He This is an interesting story. So he was 16 when he was diagnosed with diabetes, however, because he was at the time I'm working as someone with a professional driving license, they diagnosed him as type two, because back then if you were diabetic with type one, you could not be a commercial driver of any sort, they would pull your license. So they diagnosed him as type two and put them on Metformin. And obviously, that didn't work like at all. But he stayed with that until he was in his 30s when my brother was diagnosed and one of the nurses that the hospital that was one of my brother's nurses was like, You're being dumb. They won't pull your license anymore. Just switch it get on insulin because you need this

Scott Benner 15:44
16 What was he like flying the Canadian, like space shuttle or what was he? What are you doing? You're 16 that you need a driver's license for?

Lacie 15:52
He was driving a truck like flower trucks, Flower delivery trucks.

Scott Benner 15:56
Cool thought is running guns for the mob or something like they just have French accents, right?

Lacie 16:03
I mean, kind of there's a lot of Hells Angels in Quebec.

Scott Benner 16:08
Well, that could be a great title for this episode. There's a lot of Hells Angels in Quebec. I might go with that. A little long, but damn it, if it fits, it fits. So my whole reasoning for asking was your grandmother didn't have any. Like, reference points. She didn't raise the type one.

Lacie 16:29
Not so much. I mean, at that point, she'd been around my my dad and my uncle long enough that she was kind of used to that. And also she was borderline type two. So she had a meter at her house that that's what she used to test me.

Scott Benner 16:46
Do you find yourself wondering when Metformin was made originally? Because the way you said it? Oh, it's introduced the ability of metformin to counter insulin resistance and address adult onset hyper glycaemia. Without weight gain or increased risk of hypoglycemia gradually gathered credence in Europe. And they after intense scrutiny, Metformin was introduced in the US in 95. This is interesting. You look at this 60 years of metformin use at

Lacie 17:20
a glance. So did I wonder what they gave him when he was first diagnosed? Oh, it

Scott Benner 17:24
sounds like it's been around for a long time. It's this, I have an article here. I have an article here. Put the date at the top of people learn to use the internet. Anyway, this, this article is titled 60 years of metformin use. So I don't know when it was written. Because some people don't know how to set up their websites. But

Lacie 17:51
well, my dad's not 60 yet. So then yeah, he probably would have been put on that

Scott Benner 17:55
would have been inside of that timeframe. Yeah, yeah. European Association for the Study of diabetes. put a date on your articles, please. So that's kind of amazing. I definitely didn't know that. I had no idea Metformin had been around that long.

Lacie 18:13
I knew it was an old drug I just didn't realize it was battle gets used

Scott Benner 18:16
for so many different things nowadays to there are people using it in aging studies.

Lacie 18:23
Yeah, I've heard about this, that they're trying to use it off label for quite a lot of things. And I don't know they tried to give it to me at one point and my family history of metformin having very bad reactions where we get really bad Bernie muscles like almost anyone in my family who'd ever taken Metformin has had terrible muscle burn. So I did not want to try

Scott Benner 18:45
not looking for that. I've seen it used off label for weight loss. There's this right here from the NIH Metformin is also allow Metformin also retards aging in model organisms and reduces the incidence of aging related diseases such as neurodegenerative disease, cancer in humans. The despite its widespread use the mechanisms by which Metformin exerts favorable effects on aging remain largely unknown. That's interesting. That's very from the NIH. That's the government. They wouldn't lie to us. No, not at all. I don't see why they would. Do you have a government? It's not

Lacie 19:29
we do. Yes. Yeah. Although not as crazy as yours. But yes,

Scott Benner 19:32
we do have a government that boys way too pretty to be in charge of things. I think there's a lot of people that agree with you. You must get like I would get distracted. I'd walk past I'd walk past midnight like I am so damn handsome and I would just stand there for a couple of minutes. I recorded something for the people on the Facebook page, and I put like a camera in front of me. And in the camera frame. I looked great. I thought it was good. I looked good in the mirror. I got the film back late like you know that The film listened to me. I took it to the photo mat, I moved the card from one place to the computer. And I opened it up and I was horrified when I saw myself.

Lacie 20:08
Oh, cameras are not kind, especially the digital ones now like webcams are they make you look like you're demonic. It's horrible.

Scott Benner 20:17
I felt like I looked better, but or definitely didn't anyway, I don't get to run Canada. For one of them. I'm not I'm not handsome enough into I guess I'm not Canadian, which would probably really slow the process down. Okay, so I really want to as best you can tell me because you were young when it happened? Do you think it had a negative impact on your psyche? Or Or no, do you think it was kind of nice to to know it was coming like I want to understand that piece of it.

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Lacie 24:54
I think possibly long term, it led to a bit more Burn out than if I had just been kind of dropped in the middle of it. Short term, I didn't get the sudden, like, life changing news kind of thing. I didn't get the trauma from that. But because I already knew so much. And like, the first time I held a needle was the first time I gave myself an injection, there was no practice shots. They walked in with the doll as I was giving my injection for lunch, like the doll that they wanted me to practice on. I was like, No, I got this. So there was a bit of there was a bit of a perfectionist expectation, I guess I would say, where it's, oh, she's great. She's got this. And so I don't think I really was given very much assistance or support, because it was assumed that I had a handle on it.

Scott Benner 25:52
That's interesting. That's sort of like when you're a great student, and then you get into a class you don't know, but nobody wants to help you. Because like, Lacey always does great with this stuff. Like you just people yeah, get get to the point where they feel like, Oh, this is just this works. We don't have to pay attention to any more. She understands.

Lacie 26:08
Yeah, and then add on to that the fact that they also had my brother with type one. And because he was more of a traditional diagnosis story of, you know, got really skinny, you had a long history of symptoms before they finally got him diagnosed. He kind of got this label as being a problem child with behavior issues when he was young. But it was because of his blood sugars. Like he was eight years old and getting into fights because his blood sugar was probably running it 300 400 All the time, right?

Scott Benner 26:41
I mean, and as we see from you when you tried to make him eat a sorry, piece. Like I'm not sorry, it just, is that how it went? Let me let me just imagine, I in my mind, you have the yellow and the green piece. you've launched yourself across the coffee table. Your grandmother is yelling, like, what's this all about? And then you're and you're, you're like, I'm not sorry? He deserves it. Like, do you guys get the irony? These are the sorry, nevermind. Like you're making total sense, but I feel like a lunatic. Wow, that sucks. I guess. I don't know. I mean, I can't. I guess it's that like old game you play when you're a kid, when you're like, you know, if I can tell you the exact day and time you were gonna die? Would you want to know?

Lacie 27:25
Yeah, it's kind of like that, right? Like, if it's gonna cause you to just worry about it all the time, then probably not. But if you can prepare for it, then that's better. But at the same time, because I had all the time to prepare, there was an assumption that I didn't need as much support. So like, I was 11. I, I handled my diabetes, for the most part, at least, I probably had a bit of help until I would say, going into high school in grade nine. So I think I would have been 13 or 14. At that point, it was completely me. I didn't have parents telling me how much insulin to take. I didn't have, you know, any sort of assistance with trying to figure things out. And I mean, at that point, when I first was diagnosed, I was taking three units of NPH total. That was it in a day. Slowly that developed into three shots, one of mph and regular mixed, one of just regular and one of just NPH. And that was so that I didn't have to take any needles while I was at school. And then in high school, here's your human log. Here's your Lantis. Take what you need. And that was kind of it. How was

Scott Benner 28:42
the translation from regular an MPH to a faster acting meal insulin because there's a lot more to do there. They left that. Yeah, well, you know, let me go back for a second. Sometimes little girls come off very mature. Like, do you mean like, they're almost like little moms walking around and stuff like that at times? Like, did you have that vibe? Did you just were your parents just like Lacey can handle it? Or

Lacie 29:06
oh, 100% Okay. 100% I was between, you know, in my family, I was the logical, you know, responsible one. Like, I used to get teased gently by my family because we'd be watching a movie and there'd be a sad scene. Everyone in the room is crying except me. Because I'm just like, no this logically, yes, this would happen. That would happen. That makes sense. It's just like, you don't have a soul. But that kind of got applied to my diabetes as well, where it's just like, Okay, well, you're you'll get it like the doctors tell you what to take and you'll get it. And I had this weird I had this weird dichotomy in my parents. My parents divorced when I was eight. So before my diagnosis, and my mom was very much eight If you do what the doctors tell you, you'll be fine. They're very smart. They've got it figured out, just do what they tell you. And my dad, and actually, most of my dad's side of the family believe that if you go to a doctor and don't already know what the problem is and how to fix it, you're going to get screwed. So, combining those two, what I got was doctors are very smart. They're the most intelligent people. They don't have this figured out. Therefore, no one has it figured out. Therefore, it doesn't matter.

Scott Benner 30:30
Though, I thought you were gonna say that you decided that doctors are gonna just screw me really, in a way because they're super smart, but they're gonna screw me over. So you just felt like no one had an answer.

Lacie 30:44
I felt like no one had an answer. And I mean, back then CGM weren't really a thing. Pumps, I remember going to a couple meetings about possibly getting a pump. And then them telling me I would have to test my blood sugar more because of the pump. And that seemed to dissuade me. So I was never really put on a pumper anything like that when I was a kid. So yeah, I just got into this headspace of, there are no answers. No one has this figured out. Just do the best you can. But don't really stress about it, because why stress about something that no one has an answer to anyways.

Scott Benner 31:22
So does that make it feel like your life is more finite? Didn't actually I probably should have put it did. Like, there's where my common sense would have really come into play. But I want to stop on it for a second. Because I think it's interesting back then, with with the technology that existed, the insulin that existed, it really was more of a management situation. And by management, I mean, like, let's just keep this as you know, with as much at least volatility as possible, I guess the end, we'll see how long we can keep these people alive. They'll put some insulin in the morning, like they didn't know faster insulin was gonna come. They didn't know that, you know, like, there was a moment in time. Like, really, I say it every time somebody brings it up, but you would just shoot some insulin in the morning, eat on schedule, and then shoot some insulin at dinner. Right? Yeah, pretty much. Yeah. And so that was just like, you're putting this baseline of nebulous insulin in you that's going to maybe if you're lucky, holds your blood sugar down, but nobody's testing anyway. So you wouldn't really know if you were using enough or not, or if you were having foods that were so high glycaemic, you know, index, load, etc, that it wouldn't have mattered if the sun wasn't in there with enough power, like there was no nuance to it whatsoever. Now, this whole

Lacie 32:41
idea of like sugar surfing or meeting, you know, the need with the insulin, like there was none of that because you didn't have the data that you needed. And I'm a very data driven person. So for me, like testing three times a day, which was the recommendation at that point. Not even every time you ate, or every time you took insulin just three times a day.

Scott Benner 33:02
Not enough,

Lacie 33:03
it's not enough. So I was looking at it going, I can't use this. What is this? Like, you want me to try and figure out what needs to change or what needs to happen, but I don't have enough information to make that call. And even the doctors like when I'd go in. And they'd look at things, then they're just like, well, I don't know, we'll try doing this and see what three months. But I was a kid like I was I was changing so fast that that wasn't enough. So I got to a point where, because the data that I was getting from the testing three times a day wasn't enough, and it wasn't really doing any good. I just stopped testing.

Scott Benner 33:43
Yeah, because what was the point? Right, what were you getting out of the number? Yeah,

Lacie 33:46
why would I cause myself pain when I'm not really getting any useful information out of this, I'll just go by how I feel if I feel crappy. I'll take a little bit more. If I, you know, thinks I need a bit more clarity on what my number is. I'll test but like, I think I had strips going expired. Because of how infrequently I was tested. I

Scott Benner 34:07
wouldn't bother. Yeah, I have to say, that makes sense to me. It really does. I mean, I don't know how often I would do something like that if the information coming back wasn't helping. So you said you got human log in your teens?

Lacie 34:22
Yeah, I think it was 13 or 14 When I went to high school. So essentially, my elementary school didn't want me bringing needles to school, and didn't want me know when at the school was well, not that I needed them to inject me because I could inject myself but no one really wanted to take responsibility for that. So we did the nNr while I was in elementary school, because it allowed us to do one in the morning before I went to school, and then the other two when I got home later on in the day, but for high school, it was less of an issue. There's a lot more autonomy, and my high school didn't have a problem with me bringing the needles to school because it was probably an easier way for them. Manage, they didn't have to do anything about it so they didn't really care. And I was already on an IEP which is a guest kind of like your guys's legal documents for our 401k or whatever it is Wait that's a retirement plans.

Scott Benner 35:20
Why do I say that? podcast a 504 plan off the top my head, I'm in trouble. No, I get that vibe because that's one of the ways I got this. The the school to just leave us alone was I said like, look, you know, if she's texting me, you're out of this, like you haven't made any of these decisions. And they're staring at me. And I was like to be more candid. Let me be blunt. If she drops dead, it's my fault, not your fault. And they were like, Oh, that we like and then they, they just like yeah, sure. texter. Like get us out of this. You could see how excited they were to be out of the process.

Lacie 36:08
Yeah, you know, in elementary school that worked out as you know, just take the needles outside of school hours. And then when I got to high school, it was a combination of the school was okay with me bringing needles to school. I already had an individualized education plan for other things. So adding this to it wasn't that big a deal. And also, there was a cafeteria at school. So it gave me more flexibility to be able to like because I started getting lunch at the cafeteria. I love my mom. She hates cooking. So when she had she had the ability to just give me money and stop making lunches. She was like, great. Here's 20 bucks. There's your lunch for the week.

Scott Benner 36:50
I can't accept it enough. I that making lunches, doing homework? Like when that stuff stops you like Oh, thank god like it was yes, it feels like so much. I don't know why I just hated that part of being a parent.

Lacie 37:04
Yeah, it's so she's like, there's a cafeteria. Great. Here's 20 bucks lunch costs about I think it was at that time, a fries of burger of some kind and a drink were $3. So she's like, you can spend $3 a day on lunch? And you've got $5 Extra if you want to get treats. All right,

Scott Benner 37:22
cool. You me out of this? Yeah, pretty much the same thing is the school with the care. They're like, listen, let me just, I want to step away quietly. So. So when this when this occurs, this changeover occurs and you're older, and now you're shooting at meal times. Is that a big change? Like, in the way you think about diabetes?

Lacie 37:45
No, because it was still with the just testing, you know, a few times a day. So to me, it was just changing from three times to four times it didn't really feel any? Well, I guess five times if you include the night time one, it didn't really feel any different to me. Okay, so I still wasn't really thinking of it as this can give you more control. Because there wasn't the data for the control. It was just this, this is the new regimen, you know, you do at mealtimes. And then whenever you eat something, take this much. It took forever for us to even get like carb counting or a sliding scale in place. It was just kind of a very static. This is how much you take it each meal kind of thing. Okay,

Scott Benner 38:29
so regimens the exact right word, right? It's just yeah, do this, then do that. Do this and do that. Now we're going to do that a little more frequently. And what was the outcome? What were your outcomes? Like? Like, were you having a one seat? Like, do you know?

Lacie 38:44
Oh, not great, not great. I remember when I was diagnosed, my a one C wasn't diabetic yet, because they caught it so early. It was like 5.2 or something like that. And then it slowly increased while I was in the pediatric endocrinology. I think my taco was 10 by the time I exited into the adult system, because there was just it was just my body slowly given up the ghost, like it was just my pancreas slowly, deteriorating until the point where there was no insulin helping out anymore from my body. And the control just was not there.

Scott Benner 39:26
Yeah. 10 anyone sees equivalent of like, 240 average blood sugar.

Lacie 39:31
Oh, yeah. And it was swinging. I was swinging wildly.

Scott Benner 39:35
So you think you were even higher? You were in the three and four hundreds of times? Oh, probably. Yeah. I don't doubt that. But you probably didn't get low very frequently. Like dizzy, I guess dizzy?

Lacie 39:45
No, I didn't get low very frequently. Although I may have but I developed pretty severe hypoglycemia unawareness. That was in. I found out about that later on when I was in college. But yeah, it was. It just kind of slowly devolved. Like there was no real. There was no control. At that point. It was just like you said management, maybe management of symptoms, but not really control

Scott Benner 40:17
that unawareness thing. We never really dig into that for some reason, it may be you know, because it happened to you. Does that mean your blood sugar's super low, and everything else about you is fine, or your blood sugar's super low, and you're just not having symptoms, but to an outsider, you look altered.

Lacie 40:35
Um, for me, it was a combination of not having the capacity to notice the symptoms, so that someone from the outside might notice, but because my brain has already been shut off by the low blood sugar, I couldn't notice.

Scott Benner 40:52
Okay, so you were functioning but not functioning well, but unaware of it.

Lacie 40:57
Yeah. And I think that there was a combination of that with also just a minimization of symptoms, like my body didn't respond as dramatically. Because there was some time there was actually one time when I was in college, I was on a bus coming back from work, and I thought it was high. I was like, Man, my stomach's really upset. Like, I bet you any money that I'm high, I should probably take a correction. This is at the point that I'm starting to gain control over my sugar's again. Like I should probably take a correction. And I was seconds away from just taking a couple of units, like not even checking my sugar. And I was like, You know what, no, I'll test because I feel really bad. And if it's too high, then I'll know I need to take more. I tested and I was 1.6. Which is 29. Oh, wow. Yeah. And I was ready to take more insulin because I thought I was I was high. There was no way that I was low. So at that, that was actually the the incident that made me decide to go Dexcom goes that that happened? Maybe seven years ago. Wow. Yeah.

Scott Benner 42:11
So 13 years into diabetes. And you were still like, I have this. I hope Arden hears this one one day. I hope Arden hears them all one day. I don't know if y'all realize this or not. But this podcast is just a time capsule for my kid. I'm glad you guys. Oh, absolutely. And I hope she hears this one one day, because when she was little she be like, I don't need to test I feel fine. And I would always I always say the same thing. I'm like, Listen to how you felt was important. There wouldn't be any meters or glucose monitors or anything. You just do stuff when you felt a certain way. I was like, that's not how this goes. But that's fascinating. Like you just had a symptom. You assumed it was a high symptom book. I'm glad you're tested. Yeah, me too. I mean, growing luckily,

Lacie 42:56
luckily, the bus had just stopped at a stop outside of McDonald's. So I ran in and scarf down as much food as

Scott Benner 43:03
major blood sugar 500. Yeah, pretty much. I think back to driving with my friend, Mike, when we were younger. And it was always known that whoever was in the front seat while Mike was driving, you had to sort of be driving as well. Like you were just

Lacie 43:19
paying attention to Mike's symptoms. Well,

Scott Benner 43:22
we always just, you know, it's funny, we knew so little about it. And he wasn't, I don't think he knew very much about it. But it was just the idea that sometimes like you know, you'd make a right turn and you wouldn't get all the way into the lane. He just would reach over sometimes it just nudge the wheel a little bit. You'd be like, Oh, wow. But it wasn't constantly sometimes he was fine. And sometimes he had, you know, but he would get surly. And I look back now and I realized that his blood sugar was high. And that people just thought he was like jerk I didn't even personally personality, but he didn't is such a lovely person. And but that's really that's really something else at the time you got the human log did meters get more portable, at that point to

Lacie 44:06
the meters were decently portable. They all came in a little like nylon cases or whatever. So I could fit one of those. Like, I could fit my meter in my back pocket, and I could fit my syringe and my bottle of human walk in my front pocket. And that was just kind of how things went.

Scott Benner 44:22
Yeah. Yeah. Mike had this little like, pouch and everything was just in it. He didn't carry a meter though. Interesting. Wow. Okay, so seven years ago, you almost Bolus when you're incredibly low. You realize I gotta pay better attention to this. And you find seven years ago is is pretty close to the beginning of Dexcom. So it's not like they existed for long and you were ignoring them, right? No, so

Lacie 44:47
that was oh, maybe it wasn't seven years ago. Maybe it was more recently than that. It was when I was in college, which would have been 20 1220 13 Yeah, so like, seven, eight years ago, so yeah, I guess there's that. Um, but yeah, at that point, I was actually starting, I had already started to kind of be like, Okay, this, this isn't good. Like I need to, I need to sort myself out. I think after high school, I pretty much stopped going to endocrinologists and stopped getting my UNC checks and stop testing and stop doing everything still took my insulin that was about it. stopped doing any of that until I got to college. And specifically until I moved in with my now husband, who was like, wait, don't you have to go to a doctor about this? And I'm like, Yeah, but I don't have one here. And I don't know where one is. Then he just kind of one day was out driving and texts me. And he's like, there's literally an endocrinologist office, three blocks from our place, like, call them.

Scott Benner 45:51
Well, that's loving Good for him. He's like, I like this girl. I don't need to start over again with another one. So yeah, let's keep you good. And so this is your first how long ago was this? Now when you this? When you say this? Is this seven years range?

Lacie 46:07
Yeah, it's about eight, a little bit before this incident happened. It was about eight years. So I went into this new endocrinologist office. Turned out it was a great clinic. There's LMC actually, I think you had someone earlier who was from Ontario who went to LMC. They're fantastic. And I, what's gotten with them? What was our

Scott Benner 46:28
first step of like, making the shift? Like you come in from this experience that we've been talking about for, you know, 45 minutes now. And now suddenly, you're going to be you know, quote, unquote, take better care of yourself. How does that start?

Lacie 46:41
It starts with a very good CDE. Because I originally was like, just give me my a one sees, I'll handle it. Like, I was convinced that no one had any answers for me. So there was no point in really having the discussions. And when I started talking to her, I realized, oh, you know, some stuff. This is good. Tell me everything, you know.

Scott Benner 47:05
So it's a reeducation. Really. Yeah. And it was

Lacie 47:09
finally finally finding like the information that I had been just convinced didn't exist.

Scott Benner 47:15
And willing, I was gonna say to hear it, not just say, Oh, no one knows. Because I see people get lulled into that after long periods of diabetes, especially people diagnosed right around your time, right in in the past. You just had this experience for so long, not only do you believe no one knows, this is what you think it is. And even when someone comes along and says, Hey, you know what, not for nothing. But if you just turn this dial on, do this here, and why don't you try Pre-Bolus thing? This, this would be a six a one see you It's hard to believe, right?

Lacie 47:47
Oh, yeah. And as soon as I started talking with her, I was just like, you know, this, you know, what's going on? She didn't have diabetes, but she she understood enough of it that she could talk about it intelligently. It wasn't a we'll just do this, everything will be fine. It was no like this is this is hard. This is constant, you have to be paying attention. And I understand how much brainpower that takes and how much energy that takes. So let's try and make this as easy as possible. And as low in energy as possible, so that you're actually able to, to follow through,

Scott Benner 48:24
through remember how that was accomplished. Like how did they How did she make it easy?

Lacie 48:29
First step was, she gave me a physician's Dexcom so one of the ones that I could see the results, but I had to get it back at the end of the 10 days, or whatever it

Scott Benner 48:39
was. Yeah. Yeah.

Lacie 48:42
So she gave me pens, she's like, you're gonna stop using syringes you look at the drug dealer, here's some pens so that you're actually you know, don't look scary to people when you have to take an injection let's get you a good tester let's get you let's get this Dexcom on us so that we can check your levels and make sure your your stuffs correct let's you know, get your carb ratios dialed in. It was kind of a slow process. They pretty much took what I had been doing previous previously which was the same regimen I'd been using since I was a teenager at that point. And just started from there and then just dial that in.

Scott Benner 49:21
Yeah, how far away from where you ended was what you were doing. Like were your Basal is that much different where your ID

Lacie 49:29
Oh, my Basal is didn't change a lot they adjusted slightly. I was taking way too much mealtime insulin though, like twice as much mealtime insulin as I needed.

Scott Benner 49:38
So were you just getting level a lot. I was driving myself

Lacie 49:41
into the ground because I couldn't feel it. I didn't know.

Scott Benner 49:46
How freaky was it to see the Dexcom data the first time.

Lacie 49:50
It was strange. It was so strange. I was for one I didn't realize I spiked that high after eating because it had always come down but it next Time I tested and then I didn't realize that I was going low that frequently.

Scott Benner 50:06
Yeah. It's so interesting to hear you say that because that's right about the time, I figured all that out for Arden and saw those first CGM graphs. And I was like, wait a minute, you know, the way I tell the story is that I used to put art into bed at 180. And she'd wake up at 90. And I thought I was a genius. But she would go from 180 to like 50. And then she'd sit at 50 for hours. And then I guess her liver would probably kick in, and then drift her back up while she was sleeping to 90. And I would I would just test her before she went to bed. 180 That's her setting for going to bed. You know, you make her highs so she can get through the night. And then look, she's 90 in the morning. It's perfect. She had to be 180 because she finished perfectly at 90. I never realized how low she got or everything else that was going on. And once you see it represented visually, you're like, oh my god, this is all wrong. I'm doing everything wrong.

Lacie 51:03
Yeah, yeah. So we got all that sorted out. And then the next step was getting me on a pump. Luckily, in Canada, well, at least in Ontario, I'm not sure if this is Canada wide or not. We have a it's called the assistive devices program, which pays for the pump, upfront costs 100%, and also gives you a grant every quarter to help cover the cost of this plies. So they got me hooked up with that they got me at the time it was the Animus ping got me on the pump. We talked about getting me on Dexcom. But at that point, nothing covered Dexcom. Like it wasn't the insurance companies didn't cover it, there was no government program to help with it. And I just couldn't afford it as a college kid. So they at least got me the pump. And with that came the ability to make those micro adjustments where I was like, okay, I can make these adjustments, but I need the data to make the adjustments. Therefore, I'm going to test 15 times a day now. And that's what I did. I just upped my testing to you know, as soon as I got up, you know, when I ate after I ate literally every second, I was trying to test my blood sugar to see where I was at. Because I actually had the control with the pump that I could make the adjustments if I had data, right. So it went from I don't want to test my sugar. So I don't want to pump too. Oh, this is what the pump can do. Okay, I'll test my sugar.

Scott Benner 52:33
See, do you listen to the podcast? I do. Yeah. Okay. So when I'm doing the ads for Omnipod and Dexcom. Specifically, do you just sit there and think? Yeah, yeah, that's right. That's right.

Lacie 52:43
Um, so the only thing that you have an ad for that I don't already have is the Omni pod because I'm now on the tandem. Right. And the G voc because I don't think it's available in Canada.

Scott Benner 52:56
Thank you. And I hope the advertisers are listening. But that's not what I'm like, I just you know what? We're done. Now. I didn't realize you didn't have it. No, no, I know, I just meant, like when I'm talking about the benefits of pumping, and I'm talking about the benefits of seeing your data, like that 100% of stuff saved your life changed. Yeah. Functionally changed how you live?

Lacie 53:18
Oh, absolutely. Absolutely.

Scott Benner 53:20
Which, you know, can I ask?

Lacie 53:22
Last test was 6.0. Okay, two,

Scott Benner 53:26
very well done. That's excellent. I believe that's different than 13. Oh, yeah.

Lacie 53:31
That's, that is quite a different level. And I didn't realize how much better I feel with the lower agencies. So when I got to LMC. They tested my agency and it was nine. Just from like, the education that they gave me. We got it down to eight. With the pump. We got it down to mid sevens with the CGM, which I got. Four years ago. I got the Dexcom G six when as soon as it came to Canada, that's what I got. I got that down to mid sixes. And then your podcast got me down to six.

Scott Benner 54:11
Nice. Oh, that is excellent. You I am excited for you. You must be thrilled. I love that you talked about feeling differently. Arden went swimming with friends the other night. So she was away from the CGM for a while she got a little low. She was like 63 ish when they got out of the pool. And I texted her and I was like, hey, you know your blood sugar's low or she doesn't matter. We're coming home. I was making pizzas. I can make pizzas from scratch. It's not a big deal. I was making pizza for her and her friends. They were going to come back from this friend's house, etc. And so Arden's like doesn't matter. We're on our way home, perfect. Like in her mind, she's like 63 Pizza Pre-Bolus This is perfect. And you know, like so she rolls into the house, but I didn't realize they were further away than I thought they were so by the time she got home She was like 55. And so again, whatever she starts eating the food, and we just get the Bolus in wrong. I don't know another way to put it, there was a lot going on and we just kind of botched the Bolus. And our blood sugar ended up in like the 200 range. And it took us a couple hours to fix it. And by the time she went to bed, Dad, my legs hurt. My legs hurt so bad where you come from my legs, rub my knees from my ankles, and she's like, I don't understand why my legs hurt so much. I was like, it's from the higher blood sugar. I know. You went to 200 It's 200. I know it's just 200 it doesn't seem like a big deal. But your body's so accustomed to being in a real like I can pull Arden's blood sugar up right now. It's like I'm doing an ad Hold on a second Arden's blood sugar 78. And if I go back 12 hours, the highest it's been. Let me take a look here. The highest Arden's blood sugar has been in the last 12 hours is 135. And it was basically between 120 Yeah, we had kind of a time, where overnight where it took us a while to get from 120 back down to under 100. Again, maybe three or four hours. And I don't honestly don't know what that was because she and I were watching the movie last night together. And she was like 77. And I was like, this is perfect for going to bed. Which is so weird compared to before. And I was like if we just make her 180 then. But then, as the movie ended, she started to drift up a little bit, but 107 I thought I had it. And then I didn't. Yeah, but since my gosh, since it's it's almost 11 Now since 5am Arden's blood sugar has been between 178 Yeah. So that's what she's accustomed to. Oh, yeah.

Lacie 56:48
And as soon as you go outside of that, like you feel it. And that's the one thing that I've noticed is that now that I'm used to blood sugar's that are stable and a lot lower than they used to be when I do spike up to 15, which is 270 for you guys. Like I feel terrible,

Scott Benner 57:07
right? Like, really, I'm, like, difficult to function. Terrible.

Lacie 57:11
Yeah. And just, I'm nauseous and I don't feel good, and I can't think properly. And it's just I get angry. That is one thing that has not gone away. My high blood sugars put me into a blind rage sometimes. And it's just I'm not, I am not in a good place.

Scott Benner 57:29
Well, well, I if you ever listened to Jenny on like the Pro Tip series and stuff like that, you can tell by listening to her. She's a careful, like, eater, a healthy eater. And I think part of that is because she does not like how she feels when her blood sugar gets higher. Yeah, you know, it's just, it's just is what it is, you know, it's I mean, you have diabetes, you're gonna have to make some, you have to pay attention to some things, or you're going to have this other stuff. And I just don't want people to get in a situation where my legs hurt is a normal part of my life.

Lacie 58:02
You know? Yeah. And I mean, eventually your legs stop hurting, which is crazy. Yeah, well,

Scott Benner 58:06
then you're kind of really in trouble. Because yeah, then your body's making allowances that are internal that are going to lead to other issues. Do you think about that ever? Like, like your father, you said is still alive? How's his health?

Lacie 58:19
Ah, it's okay. He is just starting to see a little bit of retinopathy, he said, to get a laser on his eyes to just kind of stop up some bleeds. Other than that, I mean, he's got high blood pressure, high cholesterol and a host of other issues outside of diabetes. But he is a full time like, he goes out he has a farm that he works on all day. Like he's, he's physically capable. He's very busy and he doesn't feel badly.

Scott Benner 58:55
For my farming snowballs, there's got to be a lot of work.

Lacie 58:59
Actually, beef cattle, we got a lot of cows up in our prairie area. It's not

Scott Benner 59:03
that it's icicles. He's a cattle farmer. Yeah, in northern Ontario. Wow. That's kind of cool. That sounds like like something I would want on my LinkedIn profile. But I guess the cattle farmer wouldn't have a LinkedIn profile. So whatever. Actually, I

Lacie 59:18
think they do. I mean, farming is big business. No, no, I

Scott Benner 59:20
know. I just didn't think they would be bothered with it. It just seems like that would people to me. I guess I wanted to make that bad joke so badly.

Lacie 59:32
You've worked so hard to get that in there and

Scott Benner 59:37
I don't care. I'll give away the editing time for this. Well, so that's good, but And how about your health?

Lacie 59:46
Oh, it's it's much better since I've managed to get everything under control. I mean, COVID kind of messed up my whole gym routine, but beyond that, like, yeah, my just went for an idea. doctor's visit. And he looked at my eyes. He's like, wait a second, I saw in your chart that you're diabetic. It's like, yeah, it's like that. Oh, okay. I would not have known that otherwise, which is what you want to hear, right?

Scott Benner 1:00:10
100% A The only thing I would want to hear more as Yeah, I found a podcast after that, because I just I'm looking for a spread of word. But that's not. I think that's amazing. I think that's super exciting for you. Because there's no doubt that on the path you were on, you wouldn't be here that much longer. I don't think,

Lacie 1:00:27
no, I still don't know how I frankly, survived from the age of about 18 to 23. I got someone looking out for me up there, because there was no other way that I didn't put myself into a coffin.

Scott Benner 1:00:41
Wow. Yeah, I do. It's such an underserved time. For Type ones. Is that college age? And really, you call it college age, if you want. But you know, that last part while your brains forming still? Yeah, like right in there. It's it's your outside of your parents purview? You're 100% sure that you know everything about the whole world, not just diabetes. You know, like I love I love during political cycles listening to like, 20 year old people. Like this is the first time they they think they're the first people who, who ever noticed that the world might not be exactly right. It's like, none of us knew we're big dummies, you figured it out. Great job. Yeah, in that moment, you know, and you just think, yeah, I guess you do really feel either. Like you need to put this thing aside and not deal with it. Because it's too much. You don't know what you're doing? Or you feel a little invincible or a mixture of those things, I guess. But yeah, that's a scary time. From my perspective, at least.

Lacie 1:01:47
Oh, yeah. And I mean, at that point, I thought I was bulletproof. Right. Like I went on a six month volunteer program to BC and then Ukraine. Wow. Wow, having absolutely no control over my blood sugar's I'm saving

Scott Benner 1:02:02
the beaver population.

Lacie 1:02:05
In BC, it wasn't beavers, what were we working on? We did do a lot of environmental work when I was in DC. And then in Ukraine, I was doing work for a university over there. Again, kind of environmentally focused, but a little bit less, because they still don't have like regular recycling programs and things like that. So

Scott Benner 1:02:25
well, well, you're like a decent person on top of all this.

No, I mean, like I didn't, like you know, like, that's a kind thing to give your time to. Where'd you meet the husband? Guy? Where'd you find him?

Lacie 1:02:40
Ah, through friends at college. In Toronto.

Scott Benner 1:02:44
It's a setup, like a blind date.

Lacie 1:02:47
Not so much. It was more. One of my friends was seeing one of his friends. And so we went over to their apartment. And those two kind of wandered off and Morgan and I were just kind of left there being like, Hi.

Scott Benner 1:03:05
This is awkward. I'm not showing you my vagina like she's going to do. So you know? Oh, yeah, pretty much actually. That's 100% what happened? So she brought you you were you were the wing woman, you were brought along for cover, so that she could safely go off and do whatever it was she was thinking of doing? Yeah, pretty much, and then you got bored. But that boy boobs is that about what?

Lacie 1:03:28
Not that day.

Scott Benner 1:03:31
Try to imagine how funny this is gonna sound bleeped out when I'm talking. Because then people will fill in like right now all of you listening. Whatever you filled in. That's how you feel just because you don't know what I said. I might have said, keychain. You have no idea how long you guys been together?

Lacie 1:03:55
We've been together for nine or 10 years, and we just got married almost two years ago.

Scott Benner 1:04:02
Congratulations. Thank you. You're right before COVID You got married.

Lacie 1:04:06
Literally September of 2019. Right before COVID

Scott Benner 1:04:09
snuck it in. You're probably a super spreader. You didn't even know it.

Lacie 1:04:13
We have a lot of friends who are kind of family friends who now they were trying to get married in 2020. And all our parents are just like, Thank God, you guys got married and

Scott Benner 1:04:24
my son was supposed to go to a wedding in the middle of COVID which of course got pushed. And he's like, Oh, I got another invitation for when I said they're gonna break up before they get married. So much time, you know, good. Oh, I know. I feel so bad for these people. It really is crazy. Are you guys thinking of making any little Canadians or what are you doing?

Lacie 1:04:46
Well, that was part of the reason why I found your podcast. I was looking for podcasts on diabetes management to get ready for pregnancy. So yeah, we are in the process

Scott Benner 1:04:59
of You're having a lot of banging constantly, Scott. Nothing's happening. I don't know. I frankly am tired of it. Oh my God, is he gonna do that again? Again, buddy. Read a book. What are you doing? I can't We can't do it the same way every time. Oh god. That's interesting. Did you hear the episode that Jenny and I did for the pro tips?

Lacie 1:05:27
The pregnancy one?

Scott Benner 1:05:28
Yes. It's good, right? It is. Yeah,

Lacie 1:05:30
all the pro tips have been really good.

Scott Benner 1:05:32
Well, I wasn't looking for that. But I appreciate you saying that. How about listening to Sam attr trimesters was that help? She was

Lacie 1:05:38
actually the first episode that I found was I think her second trimester was the the first episode that I ran across. And then from there started listening to the rest of the

Scott Benner 1:05:48
let me correct myself, Samantha. It's a, I would call her Sam. And she'd be like, Samantha, I'm like, I'm sorry. I don't know why I can't, I would write it down in front of myself. I really am. Like, I'm probably like four IQ points away from falling over, you know, just get right in front of myself. I'd look at even when you and I were messing with technical problems at the beginning. Like your your zoom comes up. I'm assuming your name and your husband's name together.

Lacie 1:06:13
Yeah, it is. Yeah,

Scott Benner 1:06:14
I know. You're Lacey. And I'm still saying your husband's name bom bom like fighting with a thing. I'm like, once I got it done, I was like, am I gonna bring that up? And now just let it go. And for all the things I understand, it's fascinating how dumb I am about other stuff. But anyway, is there anything that we didn't talk about that you were hoping to get to?

Lacie 1:06:33
I don't really think so. No, I think we covered everything.

Scott Benner 1:06:35
Cool. I enjoyed this. I love you. Fine. Yeah, I know. I know. You're just human like me, you just live slightly north of me. And there's really nothing different, except you said a boot and a couple of other things. But I just I don't know, I always enjoy my Canadian conversations. I always feel bad that it takes longer for you guys to get your technology when it comes out.

Lacie 1:06:56
Yeah, that's that's mostly just to do with our more rigorous testing processes. I mean, your FDA tends to let things through pretty easy. Ours is a bit more complicated. So we always get delayed.

Scott Benner 1:07:07
It's funny. It's funny that you that you see it that way because I think Americans would see the FDA as a long process to since

Lacie 1:07:14
Oh, it absolutely is. And doing the FDA processes probably makes everything else quicker. But I mean, there's a lot of stuff you guys have that they've just said no up here too. So

Scott Benner 1:07:22
yeah, well, if you just get an uglier Prime Minister, things might go better. Yeah, we'll see. Just the next time. Just pick the oldest beat up person on the list. Just be like, That guy doesn't look like he never looks in a mirror. This woman hasn't seen a mirror in 20 years. I'm voting for her. Do you get?

Lacie 1:07:37
Um, yeah, we we vote? Of course we vote?

Scott Benner 1:07:40
I don't know. Of course you vote. It's Catala you live on Mars in my world? I don't know you could be living under martial law. I have no idea. I don't know if that. In my mind. There are penguins telling you what to do. So I don't

Lacie 1:07:53
run into the planet. But during the winter.

Scott Benner 1:07:56
The point I'm trying to make is I understand penguins don't live in Canada and yeah, when I when I think of Canada, I think of penguins. Dudley do right? Beavers, bears moose, part of me believes you ride a moose. Like there's just I'm Oh no, I stay

Lacie 1:08:14
very far away from most things scare the crap out of me.

Scott Benner 1:08:17
No kidding. And then when you said you went to the Ukraine, do you have any idea how hard it was for me not to do a moose and squirrel impression in that moment. But I held it in. That's all. I wonder how many people are like moose and squirrel. What is this guy talk? I'm old. I know about cartoon cam bowling. Before people were born, I know stuff. I know useless stuff. And nothing about Canada. I'll go there one day. I know this is gonna happen. I know one day someone's gonna be like, come to Canada. Talk about it. I'm going to show up. I'll land on an airplane. I get out of the plane. I'll be like, this looks like everywhere else I've ever been.

Lacie 1:08:50
You live in New Jersey. That's just like a hop, skip and a jump away from us. Like it's very, very similar.

Scott Benner 1:08:57
I just know I'll like walk. I'll be so disappointed. One day I'll walk outside and like I won't be attacked by a bear. And I'll be like, god dammit. This is the same as everywhere else. No, that's what's gonna happen. Anyway, that's why I'm not going I don't want the illusion ruined.

Lacie 1:09:11
Oh, we're like a magical fantasy land to you. You can't you can't really see the reality.

Scott Benner 1:09:15
That's your policemen are riding on horses. In my mind in big red coats. I think it's lovely.

Lacie 1:09:21
I mean, they usually only do that to clear the drunks off King Street in Toronto.

Scott Benner 1:09:26
So those people do exist though. They do Yeah, they use the horses

Lacie 1:09:29
to they go like breast a breast across the street and just drive all the drunk people home

Scott Benner 1:09:36
there's that many drunk people

Lacie 1:09:38
on King Street in Toronto? Oh yes. King streets like the the entertainment district. There's a lot of bars on King Street.

Scott Benner 1:09:44
Well, listen, I wish you luck with the making the baby thing. I mean, you're fed up with this sex. You're like, it's enough already. Let's be done.

Lacie 1:09:56
Or you just gotta just gotta try different things that keeps it fun. Yeah,

Scott Benner 1:09:59
no, I know. You know, it'll take the fun away. Oh, baby. Yep. There's, there's no, there's nothing that so conflicts with itself as the process. Although your husband will look back on this time later and feel lucky about this that it took, like, I remember when we had Arden first time, she got pregnant the first time and I felt ripped off in a way that is difficult to put into words. It's just like, how could it have happened the first time

Unknown Speaker 1:10:30
process just completely cut short. And we didn't even do this was supposed to

Scott Benner 1:10:34
be fun. I might have put this in my book, but we did it like rushing out the door to go trick or treating with my son. Like, she was like, this is when we should start trying and I was like, okay, she's like, well, he's putting on his costume upstairs with your mom. This is so dirty. She's so we ran to the Arden was conceived in a basement. I just want to say that right now. And that's right, Arden, in case you didn't know. And you're like 30 years old, listen to this now. But you know, it wasn't a I wouldn't call it, you know, a loving moment. It's more of like, I think we can get

Lacie 1:11:08
this in your on a time schedule. Yeah, by the way, there was.

Scott Benner 1:11:11
There was no pun intended there. But I think we can get this in before we leave for this for the triggers and the readings. And then we did and then she was pregnant and like no time and I was like, Oh, come on. That was I don't know. All right. Well, I'm gonna let you go. You're probably sore.

Lacie 1:11:30
Yeah, I got to go do some stretches. Now.

Scott Benner 1:11:32
See, Canadian women have a great sense of humor. This one from the podcast, but I'm not kidding. By the way. I've totally learned this from the podcast. Not that other women don't but you guys are.

Lacie 1:11:43
Well, we're the butt of everyone's jokes. You kind of have to get a good sense of humor. Eventually.

Scott Benner 1:11:47
We Canadians.

Lacie 1:11:49
Have you have never watched a comedy special from any American comedian like Canadians are always that show.

Scott Benner 1:11:56
I mean, really, all we really know about you is that movie strange brew. There's nothing else. That's probably part of the problem. I mean, you sent us that Dave Coulier a guy you should have sent somebody better. I don't know what to tell you. I mean, I didn't mean

Lacie 1:12:09
we did send you Brendan Fraser at one point, which was he was pretty awesome

Scott Benner 1:12:14
for five seconds. And Alan Thicke was fine, but then he made that boy, now I'm stuck with him. Robin?

Lacie 1:12:21
Yeah, yeah, we try forget about that one.

Scott Benner 1:12:24
I am. I will say this before I go. I am endlessly fascinated that hockey is not more popular in America than it is such a good sport.

Lacie 1:12:34
It's great. But the problem is it's so bloody expensive to try and put your kids in it.

Scott Benner 1:12:39
Oh, playing it's tough baseball. Yeah, baseball similar here. You have to because it's not just something you can get. Just pick up a ball a ball and do it. You have to have a future mindset, a field and etc. And it makes it

Lacie 1:12:51
Yeah, I mean, I played baseball, softball, because apparently girls can play baseball in Canada. But it wasn't that expensive. Like all I had to bring was my glove my cleats. coaches were the ones who had to bring bags and bags of bats and everything else and

Scott Benner 1:13:07
hockey's the skates and the pads and the you have to have a ring

Lacie 1:13:10
and God forbid someone has a kid who wants to play goalie.

Scott Benner 1:13:14
All that stuff, too. Yeah. All right. Well, I guess you're I'm just telling you it's as a spectator sport goes. Hockey's amazing. Oh, hockey. It's great. But I don't know you guys are having trouble marketing it. And you put that handsome guy on that and see what you can figure out.

Lacie 1:13:29
Also, I think you guys have a harder time sitting in a cold arena.

Scott Benner 1:13:33
I'm cold was working out for a college one day baseball in the bathrooms were in the hockey rink next door. And just walking in the outskirts of it to the restroom. You needed a jacket. It was the middle of summer so cold in there. I mean, it makes sense. I'm not an idiot. Like, I know there's trying to keep ice frozen. But I can't imagine being a parent having to sit there. Like no matter what time of year it is, like bundled up to watch a hockey game, I guess.

Lacie 1:13:59
Yeah. So we're used to it. I mean, when it gets to be winter here doesn't matter where in the country you are, you're cold. So it's just like, oh, that's fine. But I imagine people living in you know, South Carolina might not be so interested in sitting in a freezing cold

Scott Benner 1:14:15
or making a point. Well, yes, no ball farmers are not bothered by the cold. That's for certain. No, they definitely aren't. That's all. Alright, but this was lovely. You're delightful. Thank you very much. Thank you. It's

Lacie 1:14:26
great talking to you. Yeah,

Scott Benner 1:14:27
I agree. It was great talk note is great talking to you too.

I'd like to thank Lacey for coming on the show today and sharing her story with us. And I also want to thank Dexcom, makers of the Dexcom G six continuous glucose monitor and Omni pod makers have the Omni pod dash and the Omni pod promise for being sponsors of the Juicebox Podcast. Don't forget to check them out at Omni pod.com forward slash juicebox and tech comm.com forward slash juice box. When you support the sponsors, you're supporting the show. If you're a US resident or the caretaker of a US resident, and you have type one diabetes, T one D exchange.org, forward slash juice box, take the survey, less than 10 minutes support people living with type one, and again, support the Juicebox Podcast. I want to thank you for listening today and remind you to subscribe and follow in an audio app. While I have your attention. Let me let you know about the Facebook page for the podcast completely free. But private Juicebox Podcast type one diabetes 20,000 members and growing people just like you looking for support community and maybe sometimes a virtual hug or a little bit of advice for another type one Juicebox Podcast, type one diabetes on Facebook. If you're enjoying the show, please go into that audio app that you're listening in and leave a fantastic five star review. It helps other people to find the show and to get started. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast.