#549 Pregnant in Slovenia
Katy has type 1 diabetes.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends, and welcome to Episode 549 of the Juicebox Podcast.
You are going to enjoy today's show, I interviewed Katie while she was pretty pregnant. Today she has a baby. At the end of the episode, I'll tell you more about that baby. For now remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise. Also remember that you should consult a physician before making any changes to your health care plan or becoming bold with insulin. This one's fun. I remember we did this with the video on which I don't often do. I remember Katie saying she hadn't had much interaction with adults. And we had a really good time chatting. Oh, and she's living in Slovenia right now. which sounded exotic to me. Of course, I am a person who when I hear you live in Canada imagines you're being killed by a bear. So I don't have a world traveler view.
As I reflect on what I've just said, I don't even know if I count as an adult, so maybe she hadn't had any contact with adults.
This episode of The Juicebox Podcast is sponsored by the Contour Next One blood glucose meter, I want you to go to Contour Next one.com forward slash juice box to learn more about the most accurate blood glucose meter that I've ever used. The show is also sponsored today by touched by type one, find out more about them at them that does not say them correctly. Find out more about them at touched by type one.org or on their Facebook or Instagram pages.
Katy 2:03
My name is Katy, I'm 32 years old and type one diabetic. And I'm seven months pregnant. And now I'm currently living in Slovenia.
Scott Benner 2:14
Nice. Okay, so Katie, when you think you're turning your head, and so you're like, Hey, I'm Katie.
Katy 2:23
Ah, okay, the microphone isn't as good. I'll just hold it. This is better.
Scott Benner 2:26
Wow, that's amazing. If you if you feel like doing that the whole time. Definitely do that. But will will will, will leave your microphone training in the episode. So how would you say you're 32. And you were diagnosed when?
Katy 2:39
When I was 1111 2000
Scott Benner 2:43
years ago? Yeah. See how quickly I did that. impressed at all?
Unknown Speaker 2:50
mazing.
Scott Benner 2:51
No, you weren't. I was I think that's the problem is that I was like, that's 21 years ago. And then this little like confetti pops off of my head. And it's like, you did it. I don't know what's wrong. I don't know why my brain doesn't grasp math the way it should. Anyway,
Katy 3:05
well, this is fairly simple math, right? It's 2021. But still,
Scott Benner 3:10
why don't you're saying but I'm just impressed it like it because you don't. Alright, look, not to get on a sideline, but my brain takes out a chalkboard and I can visually see your age. And then that happen. And then it goes oh, you just take the one off. And then there's two here. So that's 20. And then that's one. And they literally happens like that in my head, which is why I'm not good at geometry and algebra and other things. Because I think I would need more of a grasp of Math and Math to get through that stuff.
Katy 3:34
But it just sounds like you're kind of a visual person.
Scott Benner 3:36
You thanks. So yeah, you're probably right. Okay, long time then is the answer. you're originally from California. Yes.
Katy 3:45
Originally from kind of the well, originally from the Bay Area, and then I grew up in the Sierra Nevada foothills.
Scott Benner 3:53
Oh, that sounds lovely. Was it? Yeah. Yeah.
Katy 3:56
It was a small I was in a small town. Really beautiful.
Scott Benner 3:59
That's amazing. I wish but you don't live there anymore. Now, wisely. I
Katy 4:05
live in Slovenia, in the capital city Say that one more time for people. Currently I live in Slovenia. It's a in Europe. It's between Italy and Croatia and Austria, kind of
Scott Benner 4:19
nowhere near the foothills. And
Katy 4:23
we have some Alps. nearby.
Scott Benner 4:27
How did you end up there?
Katy 4:29
My husband is a Slovenian guy. So he was doing an internship in California in Silicon Valley. When we met about eight years ago. And now we've been living here for about a year and a half.
Scott Benner 4:45
And he said, I have to go home. And you were like, I'll go with you how long you've been married.
Unknown Speaker 4:51
We've been married about three years. I think
Scott Benner 4:54
so he springs this on you after you're trapped? Is that what you're saying?
Katy 4:56
No. I actually wanted to No, this is always something that we kind of planned on. That was just a matter of the timing. Gotcha. Well,
Scott Benner 5:05
that's, that's really cool. I mean, it's adventurous at the very least to. I mean, it would have been adventurous to move to Arizona in my opinion.
Katy 5:14
And you don't know me, but it's very adventurous for me. Also, I'm not a huge risk taker by nature. So
Scott Benner 5:20
that's pretty cool. And it sounds like it's going okay. Except for before we started recording the mail system in Slovenia, not good. We start with the mail system. Yeah. But that's neither here nor there. So how, yeah, so you've got diabetes. As a child, you grow up with type one being on your parents situation, imagine you went to college, and then got a job, you're on your own, and then you leave the country. I so I, before we dive into why you're on the show, I kind of want to start off with how that changes, like what happens when you leave one country and go to another? How do you manage all that?
Katy 5:56
The diabetes component or
Scott Benner 5:59
like get everything, no getting your stuff, like getting your, you know, your diabetes, tak and like, all that.
Katy 6:05
Yeah, that was kind of a scary aspect. But it turned out to not be as difficult as I thought it was going to be. The hardest part was just making sure I would have enough supplies in this interim period before I had insurance over here. But once you have insurance over here, which you get, as soon as you are registered as a resident, even if you're a temporary resident, then you are covered. So it's not a problem anymore. And it's like a universal healthcare system. So it's, it's really a lot nicer than the situation in the US. But I did stockpile supplies before coming. So I plan to have I think I had between three and six months of supplies for everything. It wasn't it wasn't so crazy, because I've had doctors in the US also, when I did, I did a three month trip to Southeast Asia and I did a three month trip around the US. And doctors are willing to help you out to cover an extra supply gap. Yeah. Loads during this kind of thing. Did you
Scott Benner 7:29
end up needing all of it?
Katy 7:31
Sorry, did you?
Scott Benner 7:32
Did you really end up needing all that backlog that you had? Or did it turn out to be more than you?
Katy 7:39
It was I was happy that I had as much as I did. And I didn't use it all up. But it was not a lot of extra wiggle room. By the time the insurance came through. There was some bureaucrat bureaucracy and I will say it's really helpful to have my husband be somebody who speaks Slovenian to help me navigate the system. Because if I were to just an American speaking English and trying to do offers
Scott Benner 8:06
me once again, this never happens. Hello. I'm recording What's up? No, I'm not kidding you. Wait, you left something in here? This is funny. Hold on was What do you say?
Okay, good luck.
So not Hey, I'm sorry, this isn't on the calendar. But I'm like it is on the calendar. No, it's not. Like it was almost like I'm not bothering you because this isn't on the calendar. And I was like, Yeah, but it is. Not only that, I understand that. Well, not only that 45 minutes ago, she was in here and I was like, Hey, I gotta record sit and she was like, Okay.
Katy 9:05
Okay, well then that's less understand.
Scott Benner 9:09
That was very interesting. Like, literally no one's ever walked in here while I was doing this before that is the first time that's ever happened. I'm sorry. I wonder if you if you were to have gotten there and didn't have stuff if you didn't prep as well as she did? It was would there have been a way for you to get what you needed?
Katy 9:27
Yeah, I think it wouldn't have been impossible. Um, I think I could have they they have a universal health care system which is great for for kind of covering everybody but I think I could have paid out of pocket to see a private doctor and just gotten a prescription and then paid out of pocket for insulin and gotcha. It might have been a difficult I might not have been able to get I don't know if I would have been able to get out because I have a continuous glucose monitor and One time. And I'm not sure if it might have been more difficult to get prescriptions for those items, but at least for kind of like, getting by I'm almost positive it would have been still okay. What if you would
Scott Benner 10:13
have said, What if you would have met a boy who is from a country where your stuffs not for sale? Like if you're pumping your CGM weren't available wherever he was from? What How would you have felt about that? Do you think?
Katy 10:27
Yeah, I mean, haven't really gone? I don't know. I haven't really gone down that
Scott Benner 10:34
is it there are places there are places all over the world that you can't get an omni Potter, you can't get Dexcom and stuff like that.
Katy 10:40
Yeah, I don't know what I mean. I'm a relatively recent convert to using CGM in the scheme of things I actually was offered when and I used the I have a mid Medtronic insulin pump 670 G, but I don't use the closed loop system. And then I have a Dexcom. Okay, CGM. And I tried the mini med CGM, maybe five years ago or so six, maybe they were trying to they were kind of encouraging me to try not with the 670 G, but with the just with the old Medtronic pump that they had. And I just hated it. It was I felt like it was inaccurate. It was beeping all the time. Driving you really crazy. And so I, I kind of thought all CGM suck. And so
Scott Benner 11:44
I don't know what to say. I don't know one person that that used that original Medtronic CGM. And that was like, This thing was great. Like, and yeah,
Katy 11:53
I used it for less than a week I think before it was like, No, this isn't for me. My blood sugar's are fine.
Scott Benner 11:59
I think in fairness to not that we need to defend anybody, but being the first through the door is hard. You know, like the first person to be like, we're gonna try a thing, you know, and then you're like, isn't work as well as I needed to? It's tough. Somebody's got to blaze a trail. And that's not Yeah, it's not usually a happy story. When you're trailblazing. That's for sure. Yeah. But so you got a little turned off to it for a while. Sorry. You were a little turned off to it for a while.
Katy 12:22
Yeah. Um, but then that, you know, I kept hearing people talk about the Dexcom. Even before I got the Medtronic CGM, people were talking about how much they love the Dexcom. But I just kind of thought It can't be that different from the Medtronic, all kind of the same, same. And so I didn't use another one for maybe three or four years after that. And then actually, I think only two and a half years ago or so. My doctor that I had just, I only had him for one or two appointments, and he was like, why are you not on a CGM? Like CGM are so great. I'm writing you a prescription just go get one. Right now this Dexcom is covered by your insurance anyway. And it really has changed my life. So if you ask me now I would really prioritize being able to get a CGM is the short answer.
Scott Benner 13:16
So it was easier to get you to Slovenia than it was to get you a CGM.
Katy 13:20
Yeah.
Scott Benner 13:23
That's hilarious. So in the note that you wrote me, you said that for a very long part of your life, I want you to really kind of dig in and explain this concept to me that, you know, I don't want to put words in your mouth, but you minimize diabetes, or tried to keep it in the background white. I want your words for it. But I want to understand how how you treated it, in that that time?
Katy 13:44
Mm hmm. Yeah, I mean, I think I was never, I've heard on some of the I listened now to a quite a few of the podcasts. And now I'm listening to them, like a couple times a week, every week. And I've heard a lot of people say, maybe they were embarrassed or ashamed. And I didn't, I think I didn't really feel that way. But um, I just really didn't want my identity to be associated with diabetes. Like, it felt like a stereotype I guess. Which is kind of crazy now to think about, but yeah, so I definitely didn't bring it up unless somebody asked. And then if somebody did ask, I always was happy to talk about it. But it's funny, especially in high school,
Scott Benner 14:33
I always think of it is. I'm trying to really listen to people and dig through what they're saying. And I wonder sometimes if that idea of like, it wasn't a big deal to me, I just didn't want to have it attached to me, is a fear reframed. Like, like, like, you must feel like that's what's going to happen or you wouldn't be concerned about it. Does that mean Yeah,
Katy 14:56
I think I thought it definitely was coming from a place of fear, I think, um, I think I thought people would maybe take pity on me or think of me as more vulnerable, or feel like they couldn't just act normally around me. Um,
Scott Benner 15:15
did you have that fear about yourself? That you were that person? Oh,
Katy 15:23
no, I don't think so. Okay, I felt like I always felt pretty confident about who I was. But you know, so I got it when I was 11. So and I also changed schools the same year. So I switched from a private, small or C, dinky school to a public school because my dad wanted a better math program in sixth grade. And I was like at that for that first year, I was giving myself insulin injections, because you had to give yourself insulin injections for a year before they'd let you get an insulin pump, right. And so I was switching to this new big school, I didn't know anybody. And I was the kid who was like stabbing themselves with needles at lunchtime. And I just, you know, at first I was really worried. And then I, then I kind of realized that maybe it's kind of a conversation starter and like, so then I kind of thought, Oh, it's like a joke. I can make a joke out of it. People will be like, Oh, are you doing cocaine? Or?
Scott Benner 16:24
Yes, that's great. These children really understand the cocaine process. Yes.
Katy 16:32
And so yeah, it actually helps me to make in the end, it helps me to make some friends. In a way. Yeah,
Scott Benner 16:39
no, I don't this I don't not understand. And I don't think like, I don't think anybody handles anything wrong. You don't need me. Like, I think whatever works, you I'm just super interested in like that. That idea of, I don't want people to see because then they attach me to it. Because I think that's obvious. I think people make snap decisions about stuff. I don't think that's an unreasonable thing. But I wonder about the juxtaposition to the people who really legit don't care. And then they're not like, it's not, like, aggro, like, don't care. They really don't care. You don't mean difference between like people who say they don't care. But that's just a position they're taking in the people who really do just drift through things.
Katy 17:23
Yeah, I definitely. Yeah, I definitely feel like I'm more on that side of the spectrum, as I've aged. But, you know, I never tried to hide it. I was always checking my blood sugar's in class. It wasn't like I was trying to minimize it in that way. Yeah. It's just socially with friends, I would never be like, hold on a second, I'm counting my carbs. Like, don't interrupt me, you know.
Scott Benner 17:51
Stop talking about Boys to Men for five seconds. Well, while while I go over how many grapes are in this bag?
Katy 17:57
And sometimes maybe I would have needed, you know, that minute, but I just didn't bring it out, you know?
Scott Benner 18:03
Don't make sense to me. And your, your management's. I mean, from what you shared with me, it's always been pretty stable, right? Like you're a one sees and things like that.
Katy 18:14
Yeah, I definitely I'm gradually, like, you've kind of talked in some of the episodes about how people kind of get complacent and don't really notice a slight drift. And so I did notice, I think I was pretty happy actually to get the CGM, because maybe in the last prior to getting it the last couple of years, I was starting to get more regular agencies in the mid to high sevens occasionally. And that's that was higher than I ever used to get. I was always kind of in the sixes, low sevens. And so I was kind of like, Ah, you know, maybe I'm, and also one of my doctors referred to me as uncontrolled diabetic on a note, and she said it was in order to be able to get better access for prescriptions of some sort. I can't remember what the context was, but it kind of just freaked me out reading. Yeah, like, even if it was her exaggerating for the sake of prescriptions, right.
Scott Benner 19:21
Let me just call you mass murder for a second, but don't worry, it's just to get your taxes lowered.
Katy 19:28
Like, Oh, God, am I am I anywhere close to an unconditioned? Maybe I kind of felt like maybe I was getting there a little bit. I was just a little too comfortable with being in the two hundreds, from time to time. Yeah.
Scott Benner 19:41
Well, it does occur to me that if the doctor was willing to say it, the numbers must have at least backed it up enough that they thought that
Katy 19:50
she wasn't like putting her license on the line by writing that
Scott Benner 19:53
it's not like you had a you know, a 5.2 a one saying she's like, this person's out of control. You know, somebody would say No, they're not and and that would have been that. Did you have all the Did you have crazy lows? Or no was your variability pretty stable?
Katy 20:08
Huh? I mean, okay, so now that I've been pregnant and on the CGM, I mean, it's all it's definitely all relative. Because looking at what my blood sugar's are like now and how stable they are now and kind of the range that they're in now and have been for almost a year, I would say that there was way too much variability, then yeah, but you know, I've heard other people talking, it's, I think I was kind of like, not really going below 40 or 50. Very often, or ever, and not really going above 250, or kind of the high 200 often or ever, but that's still a fairly good range. You know, like, that's, that's not really the healthy range.
Scott Benner 21:00
It's interesting, though, isn't it? Like talked about before the CGM before you could really see it, that all just seemed okay. Right. Like you weren't, you weren't sitting around thinking like, Oh, I have a real problem here. I have to get on top of it.
Katy 21:11
Yeah, no, I mean, I was the I was kind of like, I should start to get slightly I should hone in on my control a little bit, get back to where I was when I was first diagnosed, but then it just kind of, you know, right. never took priority.
Scott Benner 21:25
Yeah, yeah, it's, um, it's like your house is on fire and your responses, I got to make sure my smoke detector batteries are okay. Instead of we should put water on this. And it because it's not. It doesn't feel imminent. Is that why?
Katy 21:40
I don't know. I wasn't ever. No, I don't think that's why exactly. I wasn't really aware. Like I just wasn't, I wasn't really kind of looking into more current research and more current ideas about it, like, I was diagnosed when I was 11. And I was really up to date for at least, you know, five or 10 years after that point, kind of like, paying attention to jdrf, and really had a great relationship with my endocrinologist and finding out the latest. And then, somewhere along the way, I was just kind of doing my own thing, doing jobs separate from it. And diabetes is just becoming kind of a smaller and smaller part of my life. And so I think I just, I kind of got trained in an a little bit more of an old school mindset, and didn't totally adjust my thinking, as people were realizing more and more, yeah, how harmful the high blood sugars over time can be. And
Scott Benner 22:40
then you wake up one day, and you're like, this is how I do it. And there's, like,
Katy 22:45
really pregnancy woke me up. But then kind of listening to your podcast and doing my own research outside of that and reading some books. It's been interesting, kind of realizing how doable it is to have an overall lower range and a more consistent range. Well, and how healthy it is.
Scott Benner 23:07
Yeah, well, let's find out about that a little bit and what you figured out? So did you make the baby on purpose? Or was it a surprise?
Next time you buy a car, or a sofa, or a house or a pair of shoes, don't even bother shopping for those things. Just go to your doctor's office and say, I need a pair of sneakers. Just give me whichever pair you want. Doc pick out my sofa for me. Where do you think I should live nurse practitioner. That's not how things work. But you let those people give you a blood glucose meter. And you never asked, Are there other options? Does this one even work? Huh? Why don't you do that?
I'm gonna guess you were overwhelmed. You didn't know what you were doing. And you thought, Oh, this is a blood glucose meter. Why would you think there were other ones happened to me, somebody gave us insulin. And I thought this was insulin. But now Arden uses a different insulin because I looked into it. And I learned and I made a more informed choice. You can do that with your blood glucose meter. If I was you, I would start at Contour Next one.com forward slash juicebox. And look at the Contour Next One blood glucose meter. See what I'm getting out here. This is an ad. And I'm trying to get you to go to a link and you're going to do it or you're not going to but if I was you, I would and I'm not just saying that because someone's paying me. This is the meter that my daughter uses. It is absolutely the most accurate and easy to use meter that she's ever had that I've ever held. It has Second Chance test strips so you don't waste the strip. You If you don't get enough blood the first time, as a super bright light for nighttime viewing a screen that is easy to read and use, it fits nicely in your hand or in your pocket or in your purse. And it's really, really, really, really, really, really, really accurate. I don't know what else you'd want. So you should check it out. Contour Next One comm Ford slash juice box. They also have a test trip savings program that might be valuable to you. And the supplies could end up being cheaper and cash than you're even paying now through your insurance for another meter. I don't know. But that's where you find out Contour Next One comm Ford slash juice box it is a super informative and easy to use website that will give you all the answers you need. Do you wish that your meter was connected to an app so that all of your data can be saved in one place for later viewing. If you wish that wish comes true the Contour Next One blood glucose meter does that. But if you don't want to use the app, the meter works just as well without it. links in the show notes links at Juicebox. Podcast com Contour Next one.com forward slash juice box and while you're out on the internet tooling around getting yourself a new, amazing meter. Also check out touched by type one.org. Super simple right touch by type one.org you can do that. Let me remind you here to have you filled out the survey for the T one D exchange T one d exchange.org. forward slash juicebox. Let's get back to Katie.
Katy 26:31
It was on purpose good
Scott Benner 26:32
for you look at you. Your parents.
Katy 26:38
Yeah, he was we I had an IUD. So it was like you have to be
Scott Benner 26:46
it's tough to get around those. Lovely. So you decided to make a family? And, and I am assuming you're staying where you're at now, right? Like this is
Katy 26:56
not forever. We're actually going to be moving back to California. sometime in the next one to two years. Okay, that's the plan.
Scott Benner 27:06
Is there a language barrier for you? Are you like by yourself there?
Katy 27:11
No, it's not that everybody speaks English. Pretty much if they're under kind of a age of 40 or 50. They know pretty pretty good English. And then it's a bit of a crapshoot, depending on who you're talking to, and where you're located for kind of the older generation and also the smaller towns outside of the capital city.
Scott Benner 27:36
How much like right around like the area you live where you do what you do shop and do stuff like that, like do people like Do they look at you and go That girl's the American girl that I told you about?
Katy 27:50
Yeah, I think to some extent, you know, I'm taking I'm learning it and I try to speak Slovenian as often as I can. But it's a really complicated language with cases it's kind of most similar to Russia. And if you have to make a comparison and it's not good,
Scott Benner 28:11
you're not good. good at it. I just really imagine you wandering the street and they're like, Look, there she is. I told you there was a one there was one here it's there she and she's pregnant.
Katy 28:23
Helping it's not helping my case, but I'm pregnant and I'm really large. And I'm only seven months pregnant. I'm He's my baby is going to be really large. And I look already like I could be about to give birth so like the way I mean I guess everybody's white here but like the cute American super pregnant lady that stands out shut
Scott Benner 28:45
up and then she started making babies so I if it makes you feel better the portion of you that I can see does not look pregnant at all. You're doing your top third is rockin i would i honestly when you when you popped up, and I could see you That was my first thought. I'm like, I thought she was going to be pregnant. Like that's literally what I thought when when when you came on the camera and I was like, Oh, alright, well good. Anyway.
Katy 29:10
I'll stand up later. So you can see. It's amazing.
Scott Benner 29:16
Like two people, just like yeah, I ever see those people walking around who looked like they were made out of spare parts. Like I always imagine, you know, the end of the day, whoever's putting people together. It's like, well, we have a top half left at a bottom half left, but they don't go together and they're just like, hell let's get out of here and they stick them together and leave like I wonder if that's not what's gonna happen. I'm just gonna stand up and look like two different people.
Katy 29:40
I used to do that with my gummy bears. I'd like shoe off the head of one color and the bottom of another and glue them together.
Scott Benner 29:46
I don't understand people who don't do that. What do you think? That also works with gumdrops and other such things like you know how sometimes like, like a red gum drop and an orange gum drop tastes nice together, but you don't want to gumdrops you split them in half. Yeah. Yeah. I don't know who doesn't do that. If anyone listening doesn't do that mistake that's all fine. Get returned the gummy bears backwards. So they're like monsters?
Katy 30:12
Oh yeah, definitely. Like all kinds of Frankenstein gummy bears.
Scott Benner 30:16
Are your kids in for a lovely upbringing? I think you're super excited to have you. Do you know what kind of baby it's gonna be?
Katy 30:25
Yeah, he's a boy.
Unknown Speaker 30:27
Congratulations,
Katy 30:28
my Sorry, I I'm I am happy no matter what if he's healthy. But my family is heavily boy, filled already. So I was kind of hoping for a girl.
Scott Benner 30:39
Well, don't worry. I'm sure the fifth one will be a girl. Yeah,
Katy 30:42
I'm not having people who get stuck in your situation
Scott Benner 30:45
are always just like searching like how we're gonna do it one more time. But you don't even want to anymore? Like they they're like, do you wanna have another baby? No. But we'll do it. You don't think you're having a bunch of kids?
Katy 30:57
No way? No way. I know. I do know. And actually, once you have, I forget what the statistic was exactly. But once you have two, or possibly three of the same sex, then your, your statistical likelihood of having the opposite sex for the third or fourth. So is way way down. So like,
Scott Benner 31:18
like, this is just the soup you guys are comes out this way? Yeah, kinda
Katy 31:21
like there's some genetic components and environmental components. And some people are more prone to the environment that's good for girls or boys. So if you have this evidence backing it up already, that you have these two boys or whatever, you know, that you don't need. Don't, don't go for it. Again, if you're really hoping for it,
Scott Benner 31:40
I don't want to get too far off track. But a lot of boys in your family is there a lot of type one in your family.
Katy 31:45
There's no history of any autoimmune conditions in my family that I'm aware of
Scott Benner 31:53
just you, just me literally, like you don't have a grandma that looks tired all the time or anything like so
Katy 32:00
my grandparents have all passed away. And I do know that, you know, people weren't as aware of kind of what were the different complications that were happening to people. And so it's it's possible that there has been some genetic history that I'm not aware of, for great grandparents or grandparents.
Scott Benner 32:20
It's just interesting that on my, on my wife's side of the family, the autoimmune stuff stays with the women. Mo really mostly. But very recently, we think my son might have hashimotos, so maybe not. So I don't know. Do you have any other ones or just type one, you're only get
Katy 32:38
just type one? Yeah. My mom, my godmother has hashimotos. So I'm just starting to learn about that. But we're not really that. It's so
Scott Benner 32:49
funny when you said just type one. My inclination was to make a joke. And the joke that popped into my head, I actually stopped from coming out, which is a real life triumph for me. It's not gonna stop me from saying it. Now. I just wanted you to know that I didn't mean it. But like when when I said to Jeff, just one you said no, just one I was gonna go loser. I don't know what kind of a type one can't get another autoimmune disease?
Katy 33:13
Yeah, well, you know, there's still time, you know,
Scott Benner 33:16
don't give up. That's a good at it.
Katy 33:20
I actually just, I was listening to one of your podcasts about trial net, and I forwarded it to him because I have four brothers. So I forwarded it to my parents and my brothers. And I have five nephews and a niece. And so I was just thinking, be interesting, though. Some of my brothers have kind of aged out, there's still some of them are still kind of in the range where it would really help them to potentially get tested.
Scott Benner 33:47
Yeah, that's such an interesting concept about wanting to know or not wanting to know, I think I think I know it's funny. I think I know what side of it I'm on until you really start applying it. Well, I guess I should say this. Cole was tested when he was 12. And he didn't have any antibodies, right. And when the hashimotos came up, around like, he's almost 21 like your first inclination was like, should we test him again for diabetes antibodies? So I talked to the person I know it that I'm at trial net. And I said, you know, should we do this again? Or they said if you don't have anybody's the first time it's they don't even retest for it after that, like, it's incredibly unlikely. And it made me feel it made me feel good. You know, now, yeah, I yeah, if he had them back then I guess we would retest now. And then at least you'd know, but you don't I mean, like so.
Katy 34:45
And it's Yeah, I mean, it's really interesting because I feel my first thought was, this is amazing. I think everyone in my family will want to do it. I just thought automatically like, this is like information. There's power, and there will be support for you if you have anything. Plus there's this new studies for prevention. Potentially, you could prevent it even for some years, this is absolutely worth knowing. And I don't think a single brother has acted on it at all, or even responded, which is very unlike my family, so
Scott Benner 35:21
they're just ignoring you completely. They're like, we're gonna append this text didn't come.
Katy 35:25
Okay. In their defense. It is like the season of COVID. And it's a crazy year, and everyone's children are doing school from home. And it's not really a good time to add on some other potential health crisis. But but it
Scott Benner 35:37
would have been neat to hear like, thank you. Oh,
Katy 35:42
they were just Yeah, I don't they all have little children. So I just kind of cut them slack.
Scott Benner 35:46
Well, I think that's a good look into why people don't do it sometimes is that just feels like, like, what am I going to do that? Like, there's so much going on already? Is Your Life slower there than it was in California? Like, and I don't mean, like, in a bad way? I mean, is it more paced and comfortable?
Katy 36:04
For me, it is, I'm, I'm a little bit limited professionally here, because I was not speaking the language fluently. So I'm in California, I'm an occupational therapist. And here, I'm not able to work as an occupational therapist. And unless I can pass this sort of language, competency proficiency level. And so now I'm working as a native English speaker in a kindergarten only part time because right now because of pregnancy, and everything, and just kind of doing, you know, teaching on the side taking some Slovenian classes, but my life has definitely slowed down.
Scott Benner 36:53
Did that help? Do you think did that give you did that? I was wondering if that helped with your management, like, does it help to not be rushing so much?
Katy 37:03
Yeah. And so just to just to bring up kind of the differences in the Slovenian healthcare system and the US healthcare system a little, it is really amazing. If you are a type one diabetic, over here, you can have the entire nine months of pregnancy as paid sick leave. And then you get a year of maternity leave
Scott Benner 37:26
after that. So a year and nine months if you're on type one,
Katy 37:30
and potentially you split that year with your husband, so he could have three months, and you could take nine months, something like that. But
Scott Benner 37:36
so the family gets a year and nine months to use the way they want to. Mm hmm. Wow, how much of it? Did you did you keep teaching? Are you teaching still, but just not as,
Katy 37:45
though I am still teaching now. But um, it's really very, very part time. And that my I would work at a Montessori kindergarten, and it's very sort of family oriented. And they just basically letting me say how many hours I want to work. And
Scott Benner 38:03
it's lovely. Yeah,
Katy 38:05
it's great. Actually,
Scott Benner 38:06
I not that I'm trying to game the system, but my mind wanders, say you wanted to work your first seven months of your pregnancy? Could you take off a year and seven months after you have the baby? Like, can you know, the nine was different,
Katy 38:24
it's a different kind of thing you can, you have to get the doctor to sort of sign off saying that you are in fact type one diabetic and pregnant during this time. And then it's actually it is still kind of a headache in terms of the paperwork to get reimbursement. And something in favor of living in California over Slovenia is that the salaries in general are much, much higher in California compared with here.
Scott Benner 38:50
So the point is, it's not that expensive to pay you while you're not working to begin with. Yeah, that makes sense. So I thought for sure. You know, I was like, Oh, this is gonna be one of these situations. And it kind of is the way you that you know, what you did here at home. You know, when you meet somebody who's an immigrant, they're like, you know, I used to be a doctor. And now I work at a grocery store, like that kind of feeling. And in not that either of those professions are better than the other, but it's, I can't get a job. I can't even get it. Like I have to get a job where, you know, I can come in and learn the job on you know, while I'm working. It's not like you're even showing up with any information prior to.
Katy 39:29
Yeah, well, I mean, some of the I was thinking if I lived here longer, which were sort of hoping to potentially live here again, after we moved back to California for some years, then come back to Slovenia for some years. And potentially, I could, once I kind of finished the language learning to a certain extent I could work. So I started volunteering here as an occupational therapist. And I will say also that the environment I was volunteering at was amazing compared with some of the environments that I've volunteered at or worked at in the US as an occupational therapist in terms of resources and tools and kind of ideology. It was really like, it would be wonderful to work here.
Scott Benner 40:19
So you just got to ya got to learn some more words and phrases. That's all. Yeah. Well, it's nice to see that there's a level of competency that they're not willing to sink below. You know, it's kind of great. I bet you'll be able to do it.
Katy 40:36
Yeah, it's, it's slow. But I've been working for a couple years. So little by little.
Scott Benner 40:42
Yeah, I mean, Melania, Trump was the first lady so you should be able to be an occupational therapist. You seem Yeah. You seem smarter than her. If I'm just I think you can do it.
Katy 40:56
All of the Slovenians learn English automatically, basically starting in kindergarten, and, and then they usually start learning an additional language like German or something like this. as they progress through school, so most adults, as they finished high school speak something close to three languages, and many speak more. It's
Scott Benner 41:19
so messed up here, because the way they teach a second language to kids around here is you just have to pass the test. You don't have to speak it. So right. You know, I took three years of French, I don't know a word of French, my son took Spanish forever. Like I think he was like, two classes away from having and as a minor in college can't speak Spanish at all. And right, and my daughter said that her French teacher is being yelled at by her. This is one of these zoom, like things you learned during zoom. She's like, my French teacher is being yelled at by her Russian parents, and we're watching movies. I'm like, Why now? Say it again. She said we're gonna watch a movie with you know, in, in French. And then the day comes and she's like, I couldn't find this movie in French. So you now you're just watching, you know, Finding Nemo might Yeah, my 11th graders watching Finding Nemo at 10 o'clock in the morning. And she's like, I'm like they're not teachers just know. She's busy getting yelled at by her parents. Yeah, education.
Katy 42:18
That all feels very familiar. I actually really liked my French teacher in high school. But we definitely watched Finding Nemo in French. And it is definitely true that I I took three years of French in high school and three years of French in college and I don't speak French. Now as an adult. I don't
Scott Benner 42:35
know how we mess stuff up so much. Like it's everyone's so focused on just like, you have to have a good grade so you can get your next thing. You know, I want a good grade in high school. So some good college will take me I want a good grade in college so I can get some job. Meanwhile, nobody knows what they're doing in high school. Nobody knows what they're doing in college and they get their job and they don't know what they're doing either. And everyone's just trying to pretend their way through to retirement.
Katy 42:55
Yeah, I mean, I think it would be different if, if I had moved to get back or something. And then in a place where they're speaking French it would have sunk in but yeah, um, now it's been a decade since I ever even tried to speak French and it's just gone. Yeah,
Scott Benner 43:11
Arden asked me one time she's like, What do you remember about French? I was like, I think nuff means nine.
Katy 43:18
Yeah, exactly. Yeah, I
Scott Benner 43:19
was I thought I got sorry. My Damn. Like, no, I don't have much of it at all. Well, that's interesting. Okay, so you with your, I think we understand that you prior to CGM were in the mid sixes drifting into the seven sometimes, but probably had some more variability than you wanted to. You have a CGM. Now you can see it. Your How do you get yourself where you want to be? With your Awan senior variability prior to pregnancy? Or just the pregnancy shock you into doing it? How did how did that go?
Katy 43:56
Yeah, I guess I did get close. It was kind of gradual. I was talking about the idea of trying to get pregnant, um, but not really getting serious about it for maybe a year before we started trying. And my doctors were saying yeah, you need to get your ideally you need to get your a one c below a six. And that felt pretty daunting. I can remember thinking, I don't know if I've ever been below six. And and that was actually when I got the CGM, the Dexcom because that was Yeah, about a year before. We were really thinking about pregnancy and I was thinking I'm gonna need to wear one during pregnancy anyway. So I better start getting used to it now. And then yeah, so I think prior to conception, I was really more like, right around the six level Okay, maybe 6.1 or six point now.
Scott Benner 44:59
Like I did of moving it down like a quarter of a point or half a point seemed impossible.
Katy 45:06
Ah, no, but I will you know, prior to that I was probably more in the high sixes. So it was still I had still been moving it down noticeably with the help of the CGM. But then once I was about a six, it started to seem like okay, this is more doable. And then this is kind of interesting, actually. I started having a onesies in the fives pretty much all through the pregnancy so far. And then I think two or three months ago, I had one that was in the fours. And wow, I'm really doing doing okay. But then I talked to my sister in law, who is a nurse, and she also has studied diabetes a lot. And she was saying, Well, actually, the A onesies during pregnancy start to get a little wonky, because your blood volume increases so much that they might reflect a bit lower. Yeah, then you actually are,
Scott Benner 46:09
is that idea that you would literally dilute it would dilute it?
Katy 46:14
said, you know, that's great. Congratulations on your scores. But don't get too swept off your feet?
Scott Benner 46:21
Well, listen, I think you're making a strong argument here for staying pregnant your whole life till you can get a job. He's gonna stay 4.8 you might as well just just keep chugging them out. You're not Catholic, or you
Katy 46:37
know, and I, you know, I'm pretty much was not even sure if I wanted to have one or, you know, now we're thinking maybe we'll have to, but it's just like, I'm not having more than two kids, you know, I would have been happy having zero kids. I'm pretty sure. The other
Scott Benner 46:52
day my wife said, it was a lot more fun when they were little. And I said yes, it was,
Katy 46:59
I would think that it would start to be pretty fun. Again, once they kind of get out of your hair. And you can go travel and see the world you care
Scott Benner 47:07
about them. It sucks as soon as they can think for themselves if I'm being honest. Because now you have a being like being serious. Now you have to, like you know what it's like to have a relationship with your husband, right? And he's got ideas, and you have ideas, and you have to find a blend between them. Imagine if you were married to two other guys too. And you had to blend all three of their ideas together with yours. And one of them felt the same way about the other three instead of the other one. Everyone's just trying to like, and nobody wants chicken on the same night. I can tell you that much. And that stuff starts happening. And you're like, Oh my god, do you remember when you could just say to them? Hi, this is chicken, shut up and eat it? Oh, yeah, they'd go, okay. And then you'd say, Hey, I thought today we'd go to grandma's house and go swimming. And everybody go, okay, not one of them would go, No, I have plans. And the other one say, I don't want to swim. And then you just go, Wait, what? And why am I incorporating your thoughts into my life? And then before you know it, and then you're trying to save money to send them to college? And then you start thinking, Oh, god, what if I die? How are they going to take care of themselves? So now you're taking every extra dollar you have and sticking it somewhere? And you know,
Katy 48:26
and then when you say things like that, I just really feel like why am I moving back to the United States where college costs an arm and a leg when I could raise my kids in Slovenia? And they would have college built in for free and get paid a stipend while they're in college? Yes,
Scott Benner 48:44
well, you can thank my son's college bills for the veracity in which I make this podcast. So there are days I get up. And I'm like, I don't really but here we go. And yeah, like I'm doing this. And it's not that I don't love making the podcast, I don't want to say that. I'm just saying I might take a day off once in a while. If it wasn't for like the pressure of just making money to make money so that you can do this thing and then have money that have my son come home and tell me like that class was a waste of time. And think about how much I paid for it. And I'm just like, it sends a chill through your spine.
Katy 49:19
Yeah, it is a weird. I mean, I have four brothers, and we all have gone to college to some degree or another. And it's crazy to think about when you start doing the math on how much does one course cost? And then how many classes are in that course. And then if you're sick one day and you don't go to the lecture, like you don't want to do that math, you know, it's like
Scott Benner 49:43
no, I have already I know you don't want to Yeah, my son was telling me about a friend the other days ago, he is taking one class virtually like a lot of kids like my son skipped this semester completely. He said that virtual learning was so terrible. He's like, I'm just gonna skip a semester, cross my fingers for COVID getting better and go back in the fall and But he's got a friend who's taking one class. And they're excited that it's such an easy class. He doesn't have to go to the class. And I was like, I bet his parents aren't excited about that news. You know, oh, no, he's gonna get a great grade. I'm like, will he learn anything? He goes, I don't think so. I was like, then I'm not certain what's happening, then. Yeah, other than what I mentioned earlier, which is everybody's just trying to achieve to move. And nobody learns anything. Yeah, you know,
Katy 50:25
I have to say, I I'm definitely struggling with that mental shift a little bit as I'm taking these Slovenian language classes, because it really doesn't matter at all, what grade you get. And I was always in kind of in a little bit of a nervous a student kind of person. And,
Scott Benner 50:43
well, let me remind you that nuff means nine.
Katy 50:49
The point is not whether or not you're good or not, you know, the point is that you're learning the language so that you can freakin speak the language in the country that you're in, you know, speak with my husband's Grandma, like, this is the point. Yeah. So I'm really having to do like a mental shift
Scott Benner 51:06
cola for school, I said, Listen, you have to keep your GPA high enough to keep your money because he's getting money for a number of different reasons is a you need a GPA high enough to hold that money, you lose that money, you're coming home. So there's that. But after that, you don't need a 4.0. What I need you to do is leave college, understanding something, like having a grasp of something I just went Arden said to us. She wanted to go to fashion school. I was like, Alright, at least she'll come out with like a demonstrative like thing that she knows how to do. And then I found out that it's much cheaper. And I was like, well, then right on, this is definitely the way you should. Yeah. You know, until she said, Can I go in London or France? And then I was like, oh, Who the hell's gonna pay for that? I that seems expensive to me. But
Katy 51:55
maybe take a year off and do something with fashion, raise some money, get a job,
Scott Benner 51:59
that'd be nice. Yeah. But anyway, that's it, you're gonna get them, they're gonna, it's gonna be the cutest little greatest thing in the world. And you're gonna have all these high minded ideas about shaping them. And, and then one day is gonna turn like 12 or 13, and disappear into his bedroom for like three or four years. And that'll make you super sad. And then I'll get a bunch of friends, and then you're gonna be thinking a lot about I hope he doesn't drink too much or drink at all or do drugs, then you'll worry for that for about four or five years. And you'll think, Oh, I hope that girl doesn't stick because she's really not the right one. I don't think you'll worry about that. And then he'll leave and you'll feel abandoned. And that'll be it. Yeah, you. You're gonna have a great time. No child rearing progression. Meanwhile, it's it's the best thing I've ever done in my life.
Katy 52:50
Yeah, I mean, that is nice to hear I spend more time thinking about diabetes, by far than I ever have. Truly ever, at any other time in the last nine months. And so I haven't spent as much time maybe thinking about how it is actually to be rearing children. And you know, once he's here, what will that be like? And
Scott Benner 53:13
they owe a lot, and then they're gonna like pee on you and stuff like that. Yeah, it's about like that one. Eventually, you get to this really cool spot where you're just like, Oh, it's happening and they start moving. And like the when the crawling happens and everything, it's all listen again. I can talk about it and sound cynical all you want, but it's the best thing I've ever done, was raising my hands. And it's absolutely fantastic. I said to Kelly the other day, it's interesting, isn't it? People who are we were talking about somebody, you're not supposed to talk about people, but we were talking about people and and these people are having marital trouble and it doesn't look like it's gonna go well. And I said, it's interesting, isn't it? Like when you're together? It's the everybody complains about how much it sucks, you know, and being married hard and all this stuff. But people who are alone complain about being alone. married people never say I'm glad I'm not alone alone. People never say, you know, I'm glad I'm not married. It's always like, the thing I have is bad. Yeah. And so you have to at some point, just realize that everything comes with complications. And yeah, being ready for what they are, I don't think is bad. Like, I think that my explanation could sound cynical to people. But I don't think of it cynically I just think of it as like, reasonably speaking. That's about what might happen, you know, yeah, along the way. being ready. Well, it's
Katy 54:35
good. And you said something that I kind of want to say something but it's it's not exactly on topic, but you may think I'm one of the reasons that I got into listening to your podcast and actually got so I just to give you a short background, I got into the podcast when I got pregnant pretty much because I was living in Slovenia and the different health care system here and I didn't really know what to expect. And I just felt like I could use some support in general, and I looked for podcasts that might talk about diabetes and pregnancy. And then you had series. Yeah. And I think I listened to that one first. And then you also had one with Jenny Smith about pregnancy and, and then I actually had purchased her book, and I didn't realize it was the same Jenny Smith. That's fine. I've been reading her book, and I like almost cried the other day, because it was so accurate to my emotional experience during the seventh month of pregnancy. But anyway, oh, shoot, did I lose my train of thought here? Oh, I was just gonna say, um, then I started listening to some of the other episodes also. And some of the ones that caught my attention were ones about complications, people who are dealing with complications. And what I was realizing is that I have had fear of complications, without wanting to do the whole thing of like, Google search, gangrene, you know, or I don't know, like, even as an occupational therapist, I've had patients who have amputated legs, and I'm helping them to work on their amputate, you know, how to walk, how to be non weight bearing in the meantime. And so I'm definitely flirting with this understanding. But it feels very, something that I just don't want to dig into too much, like, very dark and scary. And once I realized that you have these episodes with these real people talking about their real complications, and being willing to list kind of every complication under the sun, and talk about how it affected them. But still be humans still be positive, still be experiencing their lives in a normal way, and accessible, open way, just made it all so much more approachable for me. And I think that, oh, okay, I've been listening to the podcast for some pregnancy advice with diabetes. But I think this is probably the nicest thing that the podcast offered me, it's just an opportunity to expose myself in a sort of safe setting, to the to the complications, and then, and then not be afraid of finding out more not being so afraid of outcomes. And, you know, they're not very likely to happen to me anyway. So it wasn't something that was like, I really need to look into this. But I tend to be a person who likes to know, what's the worst case scenario, right? So this was kind of a weird, black hole of information for me where I was like, I just don't need to know.
Scott Benner 57:52
Yeah, like, maybe, maybe I'll just pretend and just not look over there.
Katy 57:56
Yeah, like, Okay, I have my management has been good enough. So I don't need to
Scott Benner 58:00
Yeah, sort of like complications, or the old chair in the corner where you pile things. And you just, yeah, walk into the room, you're like, isn't this part of the room? Terrific. Don't look over there. I understand. And I'm thrilled that it did that, I have to say that my understanding of how valuable that is for people, especially right in your age range, who have had diabetes for a certain amount of time, is becoming greater. I'm hearing from more people like you who are saying that. I don't know if it went out yet or not. But I interviewed somebody who I thought for certain was going to come on and talk about how they learned to help themselves, like with insulin, and how it got them there. And then she just floored me by saying I knew how to take care of myself. I just didn't do it. And she's like, in the podcast led me to want to take care of myself. And I just I never like I didn't imagine that part of it. And that's the part I can't I kind of can't imagine it because I don't I don't have diabetes. I think that's the that's the spot where I was gonna say it hurts the show that I don't have type one. But it turns out the people who come on filled in that need so it's really lovely. I'm glad to hear and Jen Jenny, that you almost cried reading the book will make me very happy.
Katy 59:13
Yeah, and I'm sure you know, I feel embarrassed. I don't have the book right here because I'm forgetting the name of the co author. And she also I connect to her.
Scott Benner 59:22
Absolutely. No, I 100% know. But it's so weird that you heard Jenny on a podcast and we're reading a book that she helped write and didn't know it was the same person. That's Yeah,
Katy 59:31
well, cuz I just you know, when I got pregnant, I was like, I'm just gonna order any book. And it turns out there are not so many books out there for type one diabetics in pregnancy.
Scott Benner 59:40
I think on our schedule coming up, Jenny and I are gonna talk about postpartum
Katy 59:46
soon so that I can listen to
Scott Benner 59:47
I will hurry up just for you and get it done. Now I think we're doing a pro tip on postpartum soon, which Oh, great. be lucky for you because I won't be saying much. I'll just be making stupid pregnancy references whenever jokes pop into my head while she's exploiting stuff.
Katy 1:00:01
Nice. Yeah, yeah, I also tells talks to a type one diabetic who, who really amazed me, she's a wife of a co worker of my brothers. So not really a connection of mine, but, but she's type one diabetic who had twins, and a couple years ago, and then had another baby after that. And so just having twins is already a very high risk kind of situation. And so I was I'm kind of like fishing for all of the wood and all the other tips for after you give birth that you can take care of. She said, Oh, yeah, you're always going to be low blood sugar when you're breastfeeding, so have pots of gummy bears or jelly beans around in the house. And I think I thought actually, that that's also listed in Jenny Smith's book.
Scott Benner 1:00:53
She just said to me a couple months ago, she's like we need to do, because it's interesting how the pro tip series started. Like, Jenny, I know, you've heard her a lot on the show, and a lot of people have, but Jenny was just a guest. She was a person who came on once and came on again. And I always thought like, I really love the way she talks about diabetes. And so when there was this day, where I thought, I want to do a pro tip series, to like, kind of take the bigger ideas out of the podcast and put them just in one place. I thought, I need somebody else with me to balance it out. And I asked her, she was really kind of do it. And I think I sent her 10 topics. And I was like, Don't worry, I know this is gonna be a lot and I appreciate it. But it's only going to be these 10 topics, then I won't bother you anymore. And then you know, I was like, Well, what about this one? And she's like, also, we should be talking about this too. And then before I knew it, she just told me privately one day, she's like, I love coming on your podcast. And I was like, Okay, I said, Well, do you want to keep doing this? And she's like, Sure. So we just, she comes on, she's on my schedule is
Katy 1:01:51
have a great dynamic. And I feel like you come at it from different perspectives. You know, she has sort of a bit of an academic approach, but it's but she's still very accessible. I don't think she makes it overly complicated. And then you have a very real life experiential approach. And, and also, it's digestible for people. And so I think you you balance each other out really well. And then you have kind of a nice report as well.
Scott Benner 1:02:18
It's just, it's perfect. I swear to you like when it got done, I I've said to her privately, I was like, I wish that this whole thing made enough money that I could just say, Jenny, I'm going to hire you. And like, let's just make this podcast forever, because she's so like, perfect. But obviously, that's not how it works. And I've recently found, and hopefully this will keep going Erica, who's a therapist who I have a really great vibe with and, and I've recorded a couple more things with her. I'm starting to find people that fit into some certain spots. Kim came on the other day and talked about different Oh my god. A very simple word just fell out of my head. Wow, don't get old. Oh, my God. So when people do sciency stuff to try to figure out if drugs do things those are called.
Katy 1:03:11
Yeah, trials. Yeah, no, I actually just listened to this. I think I just listened to this episode. Kim.
Scott Benner 1:03:17
Yeah. And should we got done. And I said, I was like, you can do this again. I was like, whenever you have more like, like stuff to fill in for people like, let me know, because she just had a good way of going through it. And I was comfortable with her. That ends up being the key sometimes is that I just need to be comfortable with the person I'm talking to. Yeah, like a one on a one off doesn't matter. You know, I can talk to anybody one time. But there are people I've had, I think great interviews with, but I wouldn't want to do it again with them. Yeah, but there are some people when I'm just like, wow, we could do this again. This would be okay. Yeah,
Katy 1:03:48
yeah. She also was very well informed, I would say and I was also thinking about whether or not to forward this episode to my family, but I don't want to like bombard them, you know?
Scott Benner 1:04:00
pasiphae ignore you twice while you're pregnant. It's gonna start. You're gonna, your emotions will start building up and you'll be like, nobody cares what I think.
Katy 1:04:08
So yeah, well, you know, one of my brothers has three kids. So it's like, okay, he gets a write off for whatever. And they're all boys. Yeah. And they're running around, and they're at home because it's COVID. You know, it's,
Scott Benner 1:04:22
oh, it's getting it's absolutely getting crazy. My son is at the end of his wits. If there's a wit's end, my son found it. Like, it's, it's been enough, you know, and but he takes the COVID thing seriously. So he's still doing what he's doing and and i think rightfully so. But the point is, is that he just, he needs to go do something. And then it snowed here. And we were like, wait, like, I came walking the yard now. Like, like, I lost that. You know what's really terrible?
Katy 1:04:50
Oh, yeah, that was really terrible for people in California. Sorry. People in California this last summer, there were a lot of wildfires, during the COVID season and so people were like, okay, don't go out to restaurants or public places ever. And also don't leave your house at all, because the air quality is so poor. Right? And I think I know a lot of people started really having some emotional difficulties
Scott Benner 1:05:18
to lock down. It's if you're just literally being, like I said, the other day, I Honest to God was standing in my kitchen, and I thought, Oh, my god, there's that wall in the living room again. Like I just looked up. And I was like, there's that wall looks exactly the same as it looked the last time I looked at it, and I was, I like my home, and I'm starting to get angry at it. Yeah, like, just yeah, I want to, and I can't imagine how he feels he lost. You know, like I said, he lost school this semester. He might have hashimotos their side effects from it, that he's still getting through, you know, like, as the medicines coming online, and it's limited his ability to work out. He's a college athlete. So everything that he does is just sort of like God took from him at once. Not that it hasn't happened to everybody. But
Katy 1:06:02
yeah, but that's a lot to take on at one time.
Scott Benner 1:06:05
That's just too much. So and tomorrow's his birthday.
Katy 1:06:10
Happy birthday. Are you gonna see him?
Scott Benner 1:06:13
When he's here?
Katy 1:06:14
He just Oh, yeah, he's here. But the
Scott Benner 1:06:16
point is, is like, having a birthday during COVID is not easy to do to begin with. And you're already bummed out about other stuff. And he can't be around your friends and your 2021 and I'm going to give you a cupcake. It's not exactly 21 Uh huh. Yeah, the whole thing is suspect he's having a bad couple of months. He really yeah.
Katy 1:06:36
But my nephew just turned 20. And it was kind of similar. Like, he's not at home right now. But he was like, yeah, we're not gonna do that much. And thinking, well, at least he's not turning 21 because that's the one where you really want to go out drinking with your friends.
Scott Benner 1:06:52
I don't think my son's much of a drinker. But there's things he would definitely think there's things he definitely wants to be doing that he's not going to be doing. And a lot of the guys from his team are in a vacation house together. And he's not there right now because of what he's going through. So it's just really terrible. Like I I've never felt worse for him, specifically. And he is one of those people for the first 20 years of his life, like nothing ever went wrong. Like I think he fractured his wrist once when he was 15. But other than that, like he's athletic and strong and excels at things and has never really had a you know, something pushing backwards like this before. So it's, I'm sorry, we skipped over the part where I wanted to ask you, and we're up on an hour, but I still want to ask you. I mean, you're in Slovenia, you have nothing to do just come.
Katy 1:07:41
Yeah. And I you know, I'm like Harley. Yeah, it's really true.
Scott Benner 1:07:44
You're like, all day, don't worry about it. You've been great. And I enjoyed the conversation. But I wanted to ask you specifically, if you can point to what you did to go from high sixes to low sixes from low sixes to into the fives, like Do you know what happened?
Katy 1:08:02
Yeah, um, you know, okay, I would attribute a lot, a lot of their success success to the Dexcom specifically, um, but it also just becomes, I think it's just a matter of attention, more so than anything else. You know, I didn't want diabetes to be such a large focus in my life. For my whole life that I've had it pretty much. I mean, I was never ignoring it. And I was taking good enough care, but, but then when I got pregnant, it became a really large part of the focus. And so now I've been kind of you, you have made jokes a number of times, like, I can't imagine being a person who's counting every card and weighing everything. And I will just add that over here to use the metric system. So I'm starting to get really good at Well, okay, I'm getting better anyway, at guesstimating how many grams something weighs, like baking with a scale? I'm usually using a scale to weigh out how many grams and what's the carb percentage. And I've started taking into consideration fats and proteins, which I wasn't paying very much attention to before. So I think it's just a lot of attention to small things. See,
Scott Benner 1:09:21
I I'm I'm always waiting for somebody to say something that's a little different. So it can it can resonate with people listening, but I have to say that I think that the those protip episodes are so valuable, because I did boil it down though, like what it is and it's just you got to stop your blood sugar from getting high and Pre-Bolus and pay attention. Yeah, get your insulin right. It's there's not really Isn't it weird to think now, from where you came from, but it really isn't much more than that. It didn't feel I
Katy 1:09:53
was people listening before and you know, but just sort of, sort of less can consistently, the stakes were just lower, I think,
Scott Benner 1:10:02
yeah. So it's you're doing it for the baby. Now, here's the question. Are you gonna do it for yourself after the baby comes out?
Katy 1:10:08
Yeah. I mean, I think that that's a cool, it's actually maybe a more difficult question, then, then it seems, because of course, my answer is yes.
Scott Benner 1:10:20
Definitely do that. And then that,
Katy 1:10:25
you know, hopefully, I can actually back myself up and, and hold my own and not kind of let myself slide. I do feel like I've learned a lot. And I feel like it's easier than I thought it was gonna be. Okay. If you had asked me three months ago, it would be really mind boggling to hear myself saying that now. Because three months ago, it felt so difficult. But I'm learning to adapt to the changes, and I'm learning a lot. I mean, it's just like these all these little small things that are not so difficult to do. They're just habit habits, that when you form them, then you can adapt more and more easily. And you know, I think for you also, it's probably hard to imagine how people could possibly not take care of themselves. But so much of the time, it's just, do you have the habits? Do you have the knowledge? Well, in the other order? Do you have the knowledge first? And then do you have the habits belt? Right?
Scott Benner 1:11:24
Yeah, I don't believe that people ignore their health on purpose, I think I think they don't know what to do. And then they start getting responses back from their health that tells them, this is untenable, and then they give up. And that's it. I don't have tools, it's going wrong. I tried again, it didn't happen. This is frustrating. This must be that's where people come up with this is just diabetes, this must just be what it is. And there's nothing I can do about it. And it's completely understandable to reach that spot. I probably would have to like, I think all the time. Like if this happened to me and not to Arden, I don't imagine I'd be very good at this. Like it was the desire to help art and that helped me push through all the stuff that I didn't understand that was you know,
Katy 1:12:10
and now you have so much knowledge, it's like, it would be hard to you can't unknow everything that you know, now, it would be kind of crazy to imagine somebody doing something like, like this person you're talking about who said Actually, she knew how to take care of herself, but she just had to make a mental shift to do it. And that I think that can be the part of the habit formation, like,
Scott Benner 1:12:32
Yeah, I agree with you too. And you have to, it's, it's sort of like anything else. Like if you see it getting away from you, you have to draw a line in the sand somewhere in the future and say, Alright, if we get to that, I have to stop myself. But at this point, now, mismanagement for Arden means more of like a 5859, a one C. And that and that I do attribute to what you're saying. Just the idea that like I, you know, in the podcast is really helped me with it, because I had all this information coming in. But there just can be no doubt that talking about it just made it stronger. Like it feels like it feels like maybe I you know, I had this strength, but now it's just multiplied over and over again. And it's from talking to people, like now messing up looks more like a five, nine. Yeah, at any point. And I don't even think about a one C and three months anymore. Like, now there's apps like I look in sugar mate, none or you know, you use Dexcom clarity and you say, Alright, where have I been in the last 10 days? You know, like, and Alright, in the last 10 days, this has happened or you sometimes you look in like the last two days, she's been a six, two. But yeah, but for the last 10 days, she's been a five, five and you just say okay, like, there's a reason for that, you know, hormones or whatever, and you just kind of can't. It's just like you're driving. Did you know what I mean? Like, you know, eventually you've been driving for so long. You don't know your driving anymore. Like you've just you've been doing it for so many years. You get in the car, the car goes, you don't hit things. You don't come close to having an accident. Sometimes you're not even looking up you feels like you know, like it's just I yeah, I know how to do this now. Just work completely autopilot. Yeah, yeah, I think that happens for people eventually, with diabetes. It's just very hard to believe that it's going to happen in the beginning, when someone says Don't worry. Diabetes is always gonna be hard, but you're going to get so good at it that one day, it's gonna feel easy.
Katy 1:14:23
Yeah, you know, yeah, of course. And I will say it helps to have things. It helps to have some, like, the podcasts can also offer for people. A little reason to kind of learn about something new or try something different or adapt so you don't get to autopilot. ish.
Scott Benner 1:14:45
Yeah. Well, you talked about earlier, like you kind of age through it to the point where you're just like, you start. It's not the right way to do things anymore. And this is a constant conversation. People are always going to come in and we're going to talk about things that are newer, I mean, I have ever We hope that maybe even by the time this goes up, Arden will be using Omni pod five. And that'll be a new way to talk about diabetes, right? Yeah. And people can keep
Katy 1:15:11
hoping to get an omni pod. Yeah. So one small point about the Slovenian healthcare versus us healthcare. If I can just list a pro and a con real quick, because I've been meaning to, I'm making a mental note of things I don't want to forget. Um, yeah, so I actually had the G six Dexcom in California, but they don't have it here. So I had it for less than a year, or maybe just over a year in California before I came here, and then had to switch back to the g4, which I had never had before. Wow. And it's less accurate. And you have to have a receiver that you carry with you instead of having it on your phone. Right. And I don't know it's bulkier. And just, you know, these are things that don't really matter. Like when you get when it's the idea of having a Dexcom or not having a Dexcom I'm very thankful. But it's a weird situation that I also can't get an omni pod here. Because unless I somehow managed to get one in California and have somebody send it, which there's no way I could do without insurance. Right. So, yeah, so there are some real limiting factors about just being in a country that's not the kind of this the basis of where things start a lot of the time. Yeah, um,
Scott Benner 1:16:42
you know, I've spoken to wealthy people who live in like, I think Saudi Arabia, and they'll get on a plane and fly here and buy stuff cash, and then fly back with it. Like that's how far they have to go to get the the insulin pump that they want, or this CGM.
Katy 1:16:57
Yeah, that's nuts. Yeah. But you're proving something really,
Scott Benner 1:17:00
I mean, have you a one see like this through pregnancy with the g4 really is a good like, wake up call for people who are, you know, always complaining like this? This? You know, where's the seven? You know, like, when's the next one coming out? Like, you got really good technology already? You know?
Katy 1:17:16
Yeah. And, you know, yeah, it works. It's not quite as accurate, but it's still pretty accurate. And I have the, you know, the fat No, I'm not freezeout. What is it? The one touch Contour? Next One? Yeah, thank you. I have this pretty good blood sugar tester. And they're usually fairly close together. Yeah. So, you know, but this is how I know that it's, this one is less accurate than the previous one. Because that's the other thing. That's a big difference, right? With the GS six. You don't have to do the calibration. So I got really spoiled. Yeah.
Scott Benner 1:17:56
But you're saying you can tell the difference between the six and the four, the Dexcom. Because you have the Contour Next One meter, and you know how it the accuracy of it goes, which learn more about contour next, come forward slash juicebox. I don't usually do that. But it felt like it fits right. I was very smooth. Thank you. Oh, yeah. Not him.
Katy 1:18:16
So that's a con I wanted to mention. But a pro of being here, for sure. Definitely. Definitely, is that when I first got here, and they said, Okay, we're gonna just run some routine tests, because you're a type one diabetic, and they did a circulation check with my put some bans on my wrists and ankles and checked out, my circulation was in my extremities. They did an EKG to check kind of my heart rhythms. They did some basic eye exams, that everything was covered by insurance, many, just a lot more preventative measures were taken. And they said, this is routine. They do it for all their type one diabetics, right. And it's, I mean, of course, they're like, yeah, it's because we care. And as if the US doctors don't care, they just do it for the money. But, but it is true that there's one payer source here. And so when there's complications, the same payer sources paying for the recovery for that transplants, for the negative outcomes, dialysis,
Scott Benner 1:19:25
they're trying to huge, its cost cut. They're literally trying to stop you from getting sick. So that doesn't cost them more money down the road. That's great.
Katy 1:19:31
I mean, the individual doctors in Asia and the US care,
Scott Benner 1:19:35
of course, yeah. But the system set up to one system set up to stop you from getting sick and the other system set up to take care of you once you get sick.
Katy 1:19:43
Yeah, exactly. And in the US, you know, I'm an occupational therapist. So I've seen it a lot. I've seen patients who they're, you know, they're deemed non compliant and they're kicked down the road to the next higher level of care. And it's just kind of crazy to think about how our system is set up that if somebody is having higher and higher level complications, you can push them down the road. Somebody else has to pay for it at that point. Yeah.
Scott Benner 1:20:13
No, it's not here. And here, you're getting a better a better thing now. Yeah. Listen, I think we should be more worried about preventative than we are about, just, you know, but it's a very American way. Right? Like, it's like getting on a ball. Like, I wonder how long I can sit on this thing before it'll throw me like, I wonder how long I can live. ignore my health until, like, the buzzer goes off, and then I'll pay attention that sort of Yeah, that's right. And I don't know that that's not a human thing. But we definitely support it here with the way things are set up.
Katy 1:20:45
And again, you know, in the US, we're all very used to it. So it doesn't seem weird at all. Like, it actually seems weird to me to come to Slovenia, and like, how can you guys, I'll just take this for granted. It's so amazing. And people here are complaining about the health care system. And they have different complaints, but they really don't appreciate it. People are not thrilled about their health care system here. Listen,
Scott Benner 1:21:08
it would be nice if people appreciated things, but at the same time, I think some of that complaining is what continues to push that forward. You already mean like it makes people your RA will make it better. You don't I mean, and then the and then you do when you do when you do it's hard. I think it's easier macro to see the success and the and the and how things are, are improving in a lot of different ways. But when you're right there in it, you just like, you know, what the hell, like do a better job for me right now. I think they both You know, there's a way to think about both things where you can be happy, but yeah, I totally agree. Not a lot of people get the opportunity to step back. Alright, well, is there anything else that we didn't say?
Katy 1:21:48
Okay, yes, sorry. There's one tiny thing that's really haunting me. I messed up my nephew's birthday. Just want it cuz he's definitely gonna listen to this. I just want to say, I'm pretty sure he is turning 21 this year, and that I messed that up before so I apologize.
Scott Benner 1:22:03
I can't believe that was the last thing but okay. First Name.
Katy 1:22:08
Anyway, yeah, sorry. Otherwise, no, I think we covered
Scott Benner 1:22:13
what's your nephew's first name? His name is Nick. Nick, happy birthday. Whether you're 20 or 21, your aunt apparently cares about you. And you got to cut her a break because she has something that they call placenta brain.
Katy 1:22:27
Yeah, he's just gonna say can I get off on pregnancy brain on this one? Totally
Scott Benner 1:22:30
let that go. I will totally let that go. 100%. All right. Well, listen, you were absolutely delightful. I'm super excited that we did this. Thank you very, very much.
Katy 1:22:40
Thank you really, for having me. It's been really nice. And I I do really appreciate having the podcast out there. And during the pregnancy, it's made a difference for me. So
Scott Benner 1:22:48
I I appreciate knowing that and I'm, I'm thrilled honestly, anytime I hear that it's been helpful for people. It makes me feel a little like jello inside so that I get a burst.
Well, I know you must be thinking, my goodness, Scott, you've done it again, another amazing episode of the Juicebox Podcast. I agree. Huge thanks to Katie for coming on the show and sharing her story. I also like to thank touched by type one.org for their support. And the Contour Next One blood glucose meter, which you can learn more about at Contour Next one.com forward slash juicebox. really dig in, figure out if you've got the best meter and check out touched by type one.org. Oh, did I did I forget to say T one d exchange.org. forward slash juicebox. Go take that survey. When you do you'll be supporting people with type one diabetes. And the show you must be a US resident who has type one, or is the caregiver of a person with type one.
I have a little update here for you. I got a lot of pictures of a very cute baby. Anyway, she ended up having a very healthy baby boy at 39 plus four weeks, at 39 plus four weeks, and he had no low blood sugars. And all of his organs and lungs were fully developed. Yeah, that being said, likely because I have diabetes and also because the baby was big to begin with. Oh wow, baby was 10 pounds six ounces and delivered by C section. After five hours of laboring and not dilating more than three centimeters you boo. Hospitals actually great. They were when I clearly communicated that I wanted to manage my own diabetes. And my blood sugar's were between 3.5 and five during the entire laboring process. She says that she forgot to turn off her Temp Basal during the surgery and ended up going high for several hours. She also thinks that might have been some adrenaline. The only funky thing she says. Is is I was in the hospital for four days after the surgery and the standard and Slovene that's a standard in Slovenia for hospitals after c section. And they put her on a type two diabetic meal plan, she said which was a bit goofy. Otherwise, I want to share just a couple of my pictures of my guy. Thanks for doing the podcast with me. Now I'm still figuring out my new Basal rates and insulin to carb ratios a little bit and having them pretty much figured out. I have to say that I remind myself often about what you were saying during the podcast. When you asked how my control will be after birth. The question is motivating me to ensure that I maintain as tight of control as possible. Now in these months despite my new and crazy schedule, okay, that's it another baby not named Scott in the books.
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#547 Type 1 and ADHD
Nidia's son has Type 1 diabetes and ADHD.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Friends Hello, and welcome to Episode 547 of the Juicebox Podcast.
Today, my guest is Nidia. And she is the mother of a child with Type One Diabetes, who also has ADHD. We're going to talk about that, and a lot more this conversation as I'm thinking back on it now, I think involve Japan. Moving was a lot happening. I hope you enjoy it. I've made the Edit to this episode like three weeks ago. So at this very moment, as I'm putting together 12 episodes in a row so that I can go on that even vacation going away for the weekend to go to a wedding. I'm just trying to get ahead. Everything's running together on the a little bit. I apologize for that. But nidia was terrific that I remember I remember having a really warm and wonderful conversation with her. And I hope that while you're listening, you remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise. Please always consult a physician before making any changes to your health care plan, or becoming bold with insulin.
This episode of The Juicebox Podcast is brought to you through the generous support of touched by type one, learn more about them at touched by type one.org or on their Facebook page, or Instagram. Do you remember when PBS used to do that, like today's programming is brought to you through the generous support of our sponsors, and then they would list them off and you could buy an umbrella or something like that. I should start doing that at sounded very official. Anyway, one other thing before I get you to the show, there are a number of people who support me in the work I do through buy me a coffee.com forward slash Juicebox Podcast. And there were a number of people that came in this week to buy me a cup of coffee. But I'm here to list the ones who became members. Someone who used the name someone. Sue Yoli. Sarah, Amy, Steven. Connie, Anna. Laura marinda. Melanie, another someone. Corey, Jessica. Nancy, Sue Shannon, Marilyn, Alyssa laryssa, Melissa, Leah blue, Julia, Julie, Grace, Daniel, Jennifer. And Jeanette. Thank you so much, everyone. That is just very kind of you. And I really appreciate it. Buy me a coffee.com forward slash Juicebox Podcast.
Nidia 2:49
I was like nervous. Now I get why people get nervous because you're now like a celebrity.
Scott Benner 2:56
That's silly. You realize. Yeah, for the type one diabetic community, you're like a celebrity or like, I will, psycho if this makes you feel better. I woke up this morning, late. So I'm still sitting here in a pair of sweat pants, like, excited to take a shower after you and I are finished.
Nidia 3:15
You know, I thought that was the case. I'm like, I'm sure because you're so you've done this for so many years. Yeah, yeah, he's
Unknown Speaker 3:22
probably still asleep.
Scott Benner 3:23
I'm not prepping for like, I've been up for 45 minutes. Don't get me wrong, but like I took the dogs out and fed them. And, you know, like, that's pretty much it. And now we'll do this. I the idea that there's any celebrity attached to this is is patently ridiculous. Don't worry. All right, fine. So you don't take it? No, no, I appreciate it. I really don't. But it just you don't need to be. You know, it's funny. You don't need to be nervous and yet, okay. I'm always nervous. So I don't know what to say about that. Go ahead whenever you're ready.
Nidia 3:55
My name is Nidia. And for the purposes of your podcast. I am the mother of an 11 year old type one diabetic. I I'll use his name. His name is Santiago. And we've been added for almost like three and a half years almost 40. This is like we're starting our fourth year. It'll be his fourth year in August. So he was diagnosed august of 2017.
Scott Benner 4:29
When he was like seven ish. Yeah, I think he was eight. He was he eight? Yeah, he'll be 12 this year. I like it when you can't remember the dates anymore. I know. Yeah. I had to think about it. My wife's like remember. We're talking about when Arden was diagnosed and and she looked at me She's like, you don't know the date. Right. As a guy. I have no idea. I said I don't I know it's in August.
Nidia 4:55
So you don't know the date. I know the date. August 24 the 24th is when we went to the hospital August 24,
Scott Benner 5:02
is when you went to the hospital. I wonder if Arden was the 22nd. Baby. Or if I'm remembering the 22nd because that's her birthday. There's no way she's diagnosed on the same day as her birth. You said a couple weeks after her second birthday. I think I remember that. Yes. 100%. So she's the she was born. July 22. So a few weeks later at 14 days, I don't know for you, you were very literal when I said a couple of weeks. Okay, sorry. Yeah, you're right, August sometime. Yeah. When you thought when I say a couple of weeks, what you should infer from that is I don't remember the Exactly. Okay. Okay, I like that. You're like fewest three, Scott, a couple is two and dammit. 14 days after the 22nd. It's a bit harder.
Nidia 5:49
I'm a math person. I'm actually a math teacher. So you say a couple weeks? I'm like 14 days.
Scott Benner 5:58
Gotcha. I didn't ask me. I have to be honest with you. I'm going to I'm going on my blog. Now. Let's see if I can figure it out. Go ahead. I'm scrolling. It's a very well written diagnosis story. I should write my own. Before I forget, the more details and I already have the details will leave you well. There you go. I did not put the date in. I know I launched the blog in 2007. was the year after what I have had the foresight to do it on the exact day.
Unknown Speaker 6:40
Probably
Scott Benner 6:42
probably a lot of planning, doesn't it? Okay, so Santiago's is, tell me a little bit about his diagnosis, please.
Nidia 6:53
Okay, so let me take you way back. So we're a military family.
And we were stationed in Okinawa, Japan, from 2013, no, 14, sorry. 2017. Yes, that's three years. And that was really tough for me, because we had been on the west coast in California for 17 years, you know, like I had never moved, I didn't want to move. And I, I hated the idea of being overseas because I was away from my family even more. I'm originally from El Paso, Texas. And so, you know, we were in San Diego. So that's not too far. It's a 12 hour drive. And I just hated that idea. But Well, too bad military, you go or he goes alone, and I wasn't gonna let that happen. Not with three kids by you know, I had, we had three kids at that time. So we left were there. And the last year was school year 2016 through 2017. My mom gets sick. And so I mean, she's always had health problems and stuff. And, but this time, it was a different you know, she lost weight. She couldn't eat, she was in pain. She cry on the phone with me all the time. And you know, I was I was away in Okinawa, she was in Texas, and I, that's what I feared the most, you know, from going to Okinawa, something would happen and it did the last year. And so she got sick, she got diagnosed, I flew over because she was gonna have a procedure done in like, late November. So we get to, well, I get I, by that time, I had had my fourth child, which is a little girl, I had three boys. And I finally had a little girl. So I took her with me and I left my three boys behind. And I was supposed to only be there for the operation. We were thinking it was just a tumor. But you know, we find out it's cancer stage four. And so, gosh, I always get emotional. Sorry.
Scott Benner 9:24
No, it's fine. I didn't know this was gonna happen. Like, as you started talking, I was like, what's about to happen here?
Nidia 9:32
So what I always do, you know, and I, and I, I like to cry it out because it just it's always on the back of my mind. It's always it's something that you know, it's like the grief that you always carry that just kind of pops up. Yeah, and it's okay. I'm okay with that. I'm okay crying. And I'm sorry if I make you uncomfortable, but I'm okay. crying. Oh,
Scott Benner 9:57
don't worry. I'll be crying by the time we're done. So let me just do one thing you took your daughter because she was little. Yeah. Where the boys sort of old enough this they were their father was at the idea.
Nidia 10:10
Yeah, kind of my youngest was three I think at that time. Let me see. Yeah, he was three because he was born in 2013. So he was three. But he went to daycare, because I, I was online teaching and stuff. And, and I would always take him to daycare because I didn't have time to him and a little, my little girl, I would always take them to daycare because I didn't have time to do online school. And it's not like I'm teaching, but I'm grading papers, and I'm replying to emails, and I couldn't do it with them being at home. So they always went to daycare. So that was set up nicely for my husband, for him to take care of that three year old because it was an all day daycare. So I took my little girl with me and it was only supposed to be two weeks. So find out you know, she has cancer and she went through her operation. She was in the rehab, and she begged me, you know, just come back and, and I said, Okay, I'm staying. And so, and my mother in law was also like, yeah, you should stay. And I said, Okay, well, I'm staying indefinitely. So I ended up staying from November all the way to April. Yeah, so that was it was so tough on me. I mean, me emotionally and the kids obviously, but me because I'd have these dreams of that I lose my kids. Like, I just went to the park and I left them there and I left and you know, and I was because I left my three year old because he you know, the other ones, they can find their way home, the three year old. Ah, that hurts so bad. Anyway, back to the point,
Scott Benner 11:49
packaging the three year old up and shipping them to you that I think should have a couple holes in the side of the box that kids probably going to be fine. As long as you write handled with care on the side of it. I've always had the boxes that are marked like that always show up in my house very, very well. Maybe that that would have helped you some of my pain, but you know that I really understand. You know, obviously you just felt like you abandoned your daughter. And and we know you didn't buy it. That's how it was striking you. And you're describing five months or so right that you were gone a long time. It is Yeah. And I was were you caring for your mom, or were you just there supportive? I
Nidia 12:31
was no, I was helping my dad because it's only my dad. Help. I was helping him take care of her with whatever you need. Because you know, he's a man. And I mean, God bless him. He's wonderful. And I love him. He's, he took care of her so well. But I was there to also emotionally help him go through this, you know, and help each other go through this and just, you know, taking care of my mom's needs whenever she needed to be based. Or I mean, he did it too. Don't get me wrong, but
Scott Benner 13:07
it gets so tiring. And he's probably older too. How old was your mom? Yes. She was 70 370. My gosh. And your father similar age? Yes. He's seven. He was 75. Yeah, he's two years older than okay. Yeah. So help. Help is definitely needed.
Nidia 13:23
Yeah. And and, you know, I have two other brothers, but my younger one, he's got his own family and the older one. He's a lost soul. You know, he's like, alcohol drugs. I mean, that's a whole different story. Yeah, exactly. We were not gonna ask him for help. In fact, he was more damage, you know, then help so. So I was there. And and I'm the only girl in the family and it's kind of expected. I don't know. No, I
Scott Benner 13:55
understand what you're saying. I don't understand why it happens like this. But it definitely does happen like this. Because you said something so interesting. You said, you know, my brother has his own family. But you have a family and your brother wasn't like helping going, Oh, my sister can't be here. She has a family. It's just way better. Yeah, that's true.
Nidia 14:11
Yeah. But you know, he's a teacher and he has his own job. And I get Yeah, he he couldn't be there. 24 seven and, and I was working online, and that kind of just worked out. Because I could work from anywhere. Yeah.
Scott Benner 14:23
So I got caught. I don't want to I don't want to take you through the pain of your mom. And there's no reason to I just have this feeling like you're gonna tell me that while you were gone. Your son was diagnosed with type one is No.
Unknown Speaker 14:36
No, okay.
Nidia 14:37
But but that's where it all kind of began. I think that stress that was put on him without his mom for almost, you know, half a year was a big stress on him, don't you think?
Scott Benner 14:48
I think that when I look back and look at all the things, medical that I've seen pop up in people's lives that are wrapped around autoimmune somehow there is some sort of a major stressor at some Point, which sucks because it leaves people with the idea that if a major stressor never happened, this might not have ever happened to me. But you know, at some point in life, something stressful is going to happen. So,
Nidia 15:13
yeah, it'll happen. You're right at some point. And so Who would have known? But I mean, I'm not pinpointing it to that. But that was a big stressor on him. And well, let me let me take you back even further when he was born. That was in 2009. We had just moved from I mean, okay. From San Diego, California to Oceanside, California, which is like 50 miles away. And he was, you know, and he was born in Oceanside. Because my husband, you know, changed jobs. And I was pregnant. I had just left the job that I had in San Diego at you know, I had stress at that time. And when he was born, my husband's like, oh, by the way, I'm getting deployed to Afghanistan. Yeah, to Afghanistan. And so you know, that I was so stressed and the baby he was a baby, he. I remember thinking when he woke up in the middle of night crying, crying, crying, I'd be like, Oh my gosh, when can I return this baby? And then I'd be like, Oh my gosh, this is my baby. I can't return him anywhere. And I was like, overwhelmed with this, like, Oh my gosh, cuz he would cry so much.
Scott Benner 16:34
Seriously, raising a child is a hell escape. And especially when they start crying, or, you know, my son threw up a lot in the beginning, you know? Yeah, stuff like that. It's just, you're not ready for it is the truth. You know,
Nidia 16:46
he was my second child. But still Yeah, it was very overwhelming because it there's like a five year gap between my firstborn and him.
Scott Benner 16:54
Yeah, now it's just it's just a different thing. Like now if you could put me if you could take my head and drop it in a 25 year old body? I could raise a kid like, yeah. Yeah, because now I know what to ignore and what to pay attention to what's important and what's not. And I know what's scary and what isn't. Now I have all the information and none of the energy. I'd be a terrific parent. I know the energy though. But in truth, if you brought a baby here, I would die in like three weeks. You know, what? Well, you're ready to be a grandparent, baby. Please. There's some days with this autoimmune stuff. I gotta tell you, I'm just ready to get to the end. Like whatever that is, like, let's, let's fast forward. Please. Hear that's the end. I would like this to stop, please. But No, but seriously, like, sorry, no, no, no,
Nidia 17:51
we were back. Yeah. Let me go back to the story. So I remember him spitting up a lot as a baby. And sorry, I'm gonna, I'm gonna take you back even more in the last like, trimester of my pregnancy, like the last month or so I remember. Like my urine smelling very sweet. Like, like, I never had maple syrup. But I think like maple syrup. It was very sweet. And that kind of struck me. I'm like, yeah, that's kind of weird that this never happened with my first child. Anyway, I wonder if anyone else had, you know, had that in their last few months of pregnancy and has a type one child. But anyway, he sped up a lot as a baby. He wouldn't. He didn't like for us to hold him like laying down. He always wanted to be upright, like over your shoulder. I remember that. And as he grew, I remember him having like, really poor eye contact with us. He was very what is that word that they don't think about the consequences. Not a daredevil, he impulsive. Thank you. He was very impulsive. And he was like a little Daredevil. I remember the word Park core, because he would like jump around at that time. parkour was like really popular. But he was two years old. He didn't know anything about you know, popular things. There's all over the place. Yeah, he would jump off of you know, small benches and didn't think like, I'm gonna get hurt. Were my my first born who Yeah, I know. He was already five but at that age, he he knew there were consequences. He he was more laid back and he more settled down. So I noticed that difference in in. In my type one. He was very different than brother and When I tried to teach him stuff like, letters and stuff before he went into kindergarten, he would close his eyes on me. And he went open them. And I couldn't teach him anything. He went into kindergarten, knowing two letters, love letter O, and the letter X. That's all he knew. And I was so embarrassed, you know, but I, you can't teach your child. I mean, I didn't also didn't want to, to hate learning. So I just backed off.
Scott Benner 20:30
And so anytime you tried to, like, direct him with something or focus on something, he just stopped you.
Nidia 20:35
Yeah, he would just close his eyes. And didn't want to hear it. So I he went into kindergarten knowing nothing, almost i don't i don't think he didn't even know how to, like write his name. Anyway, that's that.
Scott Benner 20:50
Do you realize about ADHD at that point? Or how long was I
Nidia 20:54
didn't hear that? I? I, you know, I didn't think anything of about ADHD. I just thought I didn't I didn't think anything. I just thought what a difficult child. He's always been a difficult child. He's hard. He's hard to love. That's what I tell him. You're hard to love because of the of your behavior. And I'm so mean and strict. I mean, I guess I don't know. I'm just trying to teach him well.
Scott Benner 21:20
So he is, is ADHD, like, is it autoimmune? How do people think, how does it thought of?
Nidia 21:29
I don't think it's autoimmune. I think there's something with their brain chemistry or something like that. That it's different. It's wired differently. And I mean, he's, he is kind of weird, like, ever since he was small, you know, we're having a conversation, whatever. And he's like, Oh, my gosh, look at that bug. And it's like, on the wall, something you would ignore completely. And he will focus on the tiniest, insignificant things. And, oh, video games, he could be there all day.
Wonder why, you know, you can focus on that.
Scott Benner 22:07
Yeah. That that's no problem. School still. Is school still on the shoe? As he's older? No, because he's on medication. Ah, okay. I have to be honest, some studies indicate that both children and adults can develop ADHD infections and an autoimmune response can cause encephalitis brain formation, which may result in behavioral changes? Or I don't know if that's very, maybe that's a very specific thing. I'm not certain. But
Nidia 22:33
let me let me take you back again, to the diagnosis. Sorry. So we Yeah, so this, you know, all this poor eye contact and refusal to learn and carried him into kindergarten. And so he's still okay, in kindergarten, you know, he didn't have a, he, he's not diagnosed with type one. But in kindergarten, his teacher tells me he rolls around on the carpet doesn't listen. He doesn't do his work when you know, that you get a worksheet and it just sits there. Unless someone's right there, telling him exactly what to do. Oh, Lord. So that's when I took them to. I'm telling you his his ADHD diagnosis and his type one diagnosis. At the same time, though, it's
Scott Benner 23:22
fine, because after we get through it, I want to understand how it impacts your life with type one and all that, so that's fine. Oh, gosh, yes. So can I ask that question before we move forward? Please don't take this wrong way. Do you have ADHD?
Nidia 23:35
I do. You know, I know my brother probably does. I think I
Scott Benner 23:50
You can't blame me for doing that. I grew up on 70s and 80s. Television where there was a cliffhanger like every week, just how my brain works. I waited entire summer to find out who shot Jr. It wasn't that exciting when you found out. I'm just here real quick to tell you about touched by type one. It's a type one diabetes organization whose goal is to raise money towards the cure, and help people living with Type One Diabetes. That really is that you should learn more about them at touched by type one.org. We're also on Facebook and Instagram. But you really just take a minute and check out the website. They're doing some pretty great stuff down there. Touched by type one.org. While I have your attention, I'm going to remind you that there is a series within the podcast. Actually there are a number of them. Just going to go over them super quickly. And that's for new listeners. And then we're right back to it. There is the diabetes pro tip series. I can't tell you how proud I am of those. I hope you find them. They begin at Episode 210 in your podcast player and are listed at diet BDS pro tip comm also at that link is the defining diabetes series, which I don't even know started so long ago, I couldn't even tell you when but somewhere in the two hundreds, and again, they're also listed at diabetes pro tip calm, and they're on the front page of Juicebox. Podcast calm. The diabetes variable series is really picking up steam, there's, I think like eight or nine episodes of those at this point, really wonderful short conversations talking about the different variables that impact your life with type one. There's the after dark series, where we talked about everything from having sex with Type One Diabetes, to complications to getting high while you have type one and having bipolar, just a bunch of stuff that you don't hear about usually. But we talked about here on the podcast, there's a series about algorithm pumping. How people eat all different kinds of how people eat episodes flexitarian intermittent fasting, Bernstein fodmap on and on and on. I'm proud of those series, and I hope you find them can be tough. I know with a podcast that has over 500 episodes to find 10 or 20 mixed in somewhere. And that's why you need to go to Juicebox Podcast calm or diabetes pro tip comm to find them. I really think there'll be worth your while. Alright, that's it for today, touched by type one.org. And then check out the you know, make sure you understand everything that's inside the podcast, the show has really become a tapestry of information about diabetes, and I'm trying to help you find all the patches because I know some of them might be blending in this point. Hey, while you're at Juicebox Podcast, calm up at the top, there's a link to the free private Facebook group. There are over 15,000 people in there now talking about type one diabetes, I bet you have a lot in common with them. That's about it. Alright, let's get back to Nydia. Find out if she has ADHD.
No, I don't. Okay, because you just have a your your storytelling style is interesting. It's different than most people that that I talked to. I want to get everything in there. How's that? You feel compelled not to miss anything? Yeah, I want to get everything in there. And I know you don't have that much time. Oh, you're fine. You're telling us it's like a Quentin Tarantino movie. Like john travolta is alive and he's dead. But he's alive again. I'm just
Nidia 27:25
yeah. And it happened. Yeah, it happened so long ago, too. And I just kind of want to go in chronological order. So I don't miss thing. You don't have to
Scott Benner 27:31
feel any pressure. But I, I appreciate I just was like, I gotta ask because you jump back and forth a lot in your story. So I was like, sorry, no, no, don't be sorry. I'm just checking into things. Well, however this goes is how it goes. You don't need to feel pressure about that. Okay, but yeah, so Okay, so he's in school acts like you expect in kindergarten, you know, there's not a lot to do, but you're saying he can focus on some things, but not on other things. And and I don't know what to do. Like, I don't know what I would do. If you put me in that situation? I'm sure I would. Yeah, but, you know,
Nidia 28:05
teacher told me and she, I don't know if it was her idea or my idea to get him tested for ADHD. And so we went through the process, he gets a Vanderbilt assessment, which is like a 10. Like, not, it's not a test, it's a questionnaire. So the teacher fills it out. The mother fills it out and somebody else who helps or you know, who sees him interact. And he gets like, threes on fails to give attention to detail or makes careless mistakes in schoolwork. A three very often has difficulty sustaining attention to tasks or activities that three does not seem to listen when spoken to directly three, so everything but teacher fills out points to ADHD, this is kindergarten. Yeah. And I read your I mean, I read. I listened to your red dye story. Okay. And I, somebody did tell me about that. But you know, I don't know, it's just, to me, just that even overwhelming, just the reading labels. And I'll try but no, I think it was beyond my red dye. And I have two other kids that I was pregnant. And you know, I'm like, I can't, I can't, I can't do the red try the red dye thing I barely have, you know, enough time to give him attention. As it is I'm not gonna be reading but I mean, not that that's bad. I'm sure if you have you know,
well, I have time to do that.
Scott Benner 29:42
I think it's interesting with a lot of autoimmune stuff and, and things like this, that you think there might be an underlying cause I think there's a difference between an underlying cause that you can impact and an underlying causes already done, what it's going to do. And you know what he mean? And it's so it's hard and it's hard. Hard to know. Because there are just so many streams of information. And the only way you can really figure it out is online. And people and with people sharing their experiences, right. And so it works for some things like diabetes, like, I think that this podcast works well for people who have type one or using it as one. But when you start getting into, you know, I have this thing, and it's because of my dogs, you know, fleas, but another person has the same thing. And it's because it's an autoimmune disorder, but a third person has the same, you know, symptom, but it's from something else. How do you know which one of those things is the thing that's impacting you? Or even if, even if they are, you know, like, maybe yours is another thing. That's that. And so that is a rapid change. Yeah, very, very difficult to figure out what some people figured out by mistake. Some people do very specific, like eliminations of things, like take everything away and start over again. But I've also seen, you know, bright people try elimination diets for issues they're having with their body, and they never come to an answer. Yep. So
Nidia 31:07
and yeah, and I was not willing. I mean, I, you know, I just had a baby. I had just had a baby by this, another baby by this point. So I have four kids. I was not going to try the red dye examination thing with the other. No, it's too much.
Scott Benner 31:22
This is the truth. Listen, the truth is, you could have done it, and then nothing might have happened. And then true.
Unknown Speaker 31:28
I don't know, where do you go high waisted?
Scott Benner 31:31
Well, yeah, it's not even the waste of time. It's the like, what's next? And how? And how do I even find out what's next, then it's just and doctors are not always, you know, it's such a, it's such a, we're getting away from diabetes for a second, you go to a doctor and you say, look, these are my symptoms. And all a doctor does is go back to credited research and see what your symptoms point to. It's not like a doctor or some magical person who hears what you say, and then goes, Oh, I know exactly what this is. You got to stop drinking iced tea. You don't even like it's not it's not like that. It's um, it's very, you know, it's, it's eliminating things, it's coming up with possibilities, and then eliminate them. And then more and more and more. And I don't know, like, doctors have trouble doing it. People have trouble doing it. mothers have trouble doing it. It's not an easy thing to get something like this is, you know, whatever. type one. Yeah. And I yeah, you know, it's a lot of it's a lot of confusing stuff. And in the meantime, you're going through terrible things around it,
Nidia 32:33
as well. Exactly. And like, and the terrible thing is he was falling behind in school, which I didn't like he got his he got diagnosed at the end of kindergarten. And he was below reading level at that time. You know, he was, I saw it right now. And I've kept a lot of the papers, excuse me, that they gave me and it said, he was reading below, grade level. So first grade comes around, and I get I put them on medication. He started on Ritalin. And that was scary. He acted like a zombie and he would fall easily. He just I got scared. No, not this one. But I kept him on it for a little bit. And it did help his teachers noticed. They would tell me Yeah, he's a little more focused. But I didn't like it.
Scott Benner 33:26
Yeah, and it wasn't a magic pill either. It wasn't like he took it exactly. It's not a match. I mean, it kind of sort of I mean, I
Nidia 33:34
it does help a lot. But But you're right. It's not a magic pill, it takes away their appetite. They they do kind of change their their behavior, which sometimes is good. And for him, it was good. He was able to pay attention. He was able to learn more. And and it is good. So but so I started him on Ritalin that happened. And then I switched to someone told me about conservator. So I got him on concert. And that worked better for the rest of the school year. First grade. Okay. So conservative did good, except at the end of the day, when it wore off. He was really he was yelling, he was cranky enemy. He does that but it was over the top. So I decided, you know, I'm going to not do anything starting his second grade year. And so I did it we we didn't have him on any medication. And they asked us and we said, well, we're just gonna see what happens. Hopefully, you know, he grew he matured. Maybe he doesn't need it. Well, he know, same thing. Second grade comes around and no, he's he's still not mature. He's, although he was a little better. Because I guess you know, the first year, his first grade year, I think he got used to the idea of doing work and learning and so I think that it helped a lot but second grade, he still needed it in my opinion, but we didn't Dad was very reluctant to go to vacation. And I was too at the beginning and a lot of people are. And I felt guilty and I felt shame like, Oh my gosh, I've got my kid on ADHD medication. But honestly,
at that point, I
felt that way.
But I don't anymore. And I I feel bad when people say like, Oh, my kid has ADHD, and then someone's like, will try to change their diet or try to do this or, you know, like to avoid medication. And I really don't think people should shame someone for using medication with their child because some of us need it.
Scott Benner 35:41
Yeah, I listen, I think if you need it, you need it. I wonder, do you feel like they were trying to shame you by saying don't try medication do something else? Or did you just feel shame about it?
Nidia 35:52
I just felt shame about it. Just because it's, it's out there. You know, like, you read things or people on TV or to social media are very quick to judge that. And I, I kind of knew that even though no one really shamed me. Except my husband, he's like, I don't like, you know, what if we try it without and but I was I just went with it. And excuse me, and it helped so much and I don't regret it. And he's still on medication, you know, so I decision I
Scott Benner 36:32
What did you find that worked for him?
Nidia 36:34
Okay, so, finally, so second grade, no medication. Let me go with my timeline. So that's what I left him for five months I came back. We enjoy you know, after my mom passed away, I I we had like three months left in Okinawa. I enjoyed my summer with them, I would take them to the beach. That did lots of things. But what I remember specifically was when we went to the beach one time he got cut his his his on his foot, and it kind of look like athlete's foot. And but it wasn't it was a cut and it wouldn't heal. It wouldn't heal, it wouldn't heal. And then my husband's like, well, maybe it's athletes hood and he put some antifungal. It still won't appeal, but slowly it healed. I remember that specifically. And I also remember one time he ate a bunch of Red Velvet Oreo cookies. And he got really sick. He threw it all up in his room and it was red and the carpet got big stain on it. But I also remember another time I left him with a friend and his and my friend, she fed them cereal the whole day. She said, I just said go at it and she fed those and you know cereal?
Unknown Speaker 37:58
Like oh, crap,
Unknown Speaker 37:59
I let them have a cereal the whole day.
Nidia 38:02
Anyway, I remember those things vividly. And I remember also thinking even as a tiny baby all the way, you know, kids feet began to smell, especially when they were crocs. It smells like vinegary. It's a nasty smell. Well, his feet never stunk ever, ever, ever. And I would always tell him your feet smells so good all the time. They never stink. Hmm. Okay. Well, we come back, you know, I we move back to the states in 2017. So that year, you know, my mom passed away. My dad's my dad, my husband's dad also passed away January from cancer, but he had already been diagnosed three years before. So you know, it was a really tough year. And I was, you know, we were were beat up emotionally. And I'm sure the kids felt it. So we went back to El Paso. And we decided to drive because we had a suburban we decided to drive from El Paso to the east coast, where we live. And I'll tell you where we live. We live in Virginia, and that's like a three day drive. During those three during that the first day, I remember looking at him, and I could see his ribs. Like I could see he had like a knot. Not his rib. Well, yeah. Like, I looked at him from behind. He was so thin, and his little ribs would stick out. And I kind of thought and I'm like, Oh my gosh, she's never been this thin. And you know, you're in a car for 12 hours a day and he kept wanting to go to the restroom. And we were like, no, it's ridiculous. It was like, every half hour. So we had him go in water bottles, empty water bottles, and he would fill them up and he would want more water and he was eating a lot and I remember I actually had a type one student when I was teaching because I did teach, you know, face to face. And I remember thinking about the type one student, he was an eighth grader, and I, he would always have to go to the nurse, you know, I think it was right after lunch. So he would always walk in late, and I felt so bad for him because he missed so much material. And I asked him, Hey, how'd you know that you had type one? Like, what were the symptoms? And he told me, oh, I was drinking a lot of water. I was really hungry, but I wouldn't gain weight. And you know, bam, that hit me in the suburban. I was like, we were driving, and I'm like, Oh, my God, could it be? And I looked up the symptoms, and it said, type one. But you know, like you, like you've said on the podcast that you don't know, like, I didn't know anything about type one. But I'm like, it's probably type one. And I had no sense of urgency. I didn't realize how severe he was already in DK or starting DK or something.
Scott Benner 41:01
I mean, I think if you're seeing his ribs, we were pretty far along.
Nidia 41:04
You know, we were and you know, he's a he's a thick kid. He's always been a chubby kid. Like, he's just built big, like big boned. And this, that's not the case for my teenager. And that's not the case for my seven year old. They're really thin. But him and my little girl Oh, my goodness, they're there. You can tell they're like, hefty, and it was unusual for him for Santiago ought to be so thin. But we kept driving, whatever. We had bought a house online, like we had bought a house from Okinawa, we had never seen the house. So we had to sign papers, closing papers. When we got here. We had to sign closing papers and everything. So I was like, okay, it was the weekend almost. And I said, you know, I'm gonna It was a Thursday that we got here. And I said, we want to sign the papers. And he refused some cookies that they were offering him and I was like, that's unlike him. And he was just kind of acting up and, and then on Friday, he slept the once we finished the closing, you know, all the signing all the closing costs, papers, and all that Friday, he slept the whole day, the entire day, he was asleep the whole day. And I remember getting very worried. And when I lifted his head, his little ear was like, bent like folded. And you know, when you when you have that and you're asleep, you wake up and it hurts. Well, he didn't even wake up for that. And that, like, I just, I was like, Oh my gosh, we got to take him to we got to take him somewhere. Right. So my husband's like, well, you want me to buy a glucometer? He's a nurse, by the way. And I said, Yeah, go ahead. So he, you know, he, he was out doing something I don't remember he came back to the house and we tested his blood sugar. It was for 19. Goodness.
We started crying, my husband started crying.
Unknown Speaker 43:12
And
Nidia 43:15
we just took them to the hospital. We didn't even know where the hospital was, you know, we had to use Google Maps because we just got here. Yeah. We show up at the hospital. And my husband's still kind of in denial. Like Could it be a growth spurt? I'm like, no. We know what it is. And it's funny, the doctor that follows there. She actually was the our friend, a friend of ours, a doctor in Okinawa, and she had also come to same place in Virginia. And she's the one who, who told us you know, yeah, he wasn't DK and was diagnosed then. Okay, goodness, that's such a hard story to tell. Sorry.
Unknown Speaker 43:58
But thank you, we,
Nidia 44:02
we just got here. You know, this type one diagnosis. My dad was supposed to leave like a week. My dad came with us. He drove with us. And so he was supposed to leave like a week after we got here. And he ended up staying like, almost a month or two. Cuz we needed him. You know, we were in the hospital with Santiago. We have no one here. You know, we don't know anybody. And thank God he was here because, you know, I have three other kids, the little girl she's five, my teenager and my seven year old and, and well, they needed someone and he was here and he helped and God. But that was a awful, awful time. But oh goodness. I know. It was super unrelated to the ADHD. I know they're completely different. I don't think that the high blood sugars that he was experiencing Wherever related to his behavior.
Scott Benner 45:03
Yeah, I know what you mean. Yeah, yeah, the diabetes came on as its own thing. It wasn't lingering for years and impact me is?
Nidia 45:12
I don't know, I think it's two different things. Yeah. One of them is a brain and the other one's endocrine,
Scott Benner 45:19
it's interesting to listen to you talk about it because you do this thing. But obviously, a lot of people do. But I can hear you while you're talking. How often you search for triggers for things or reasons like in the past, like, I can feel you looking back trying to figure out like, what did this and what did that and I do burdensome it is, but you know, you've you do a really good job on all the podcasts kind of telling people what, it wasn't your fault. It was kind of just gonna happen. And I've accepted that. It's still hard when I think about it. Yeah, I think bag. It's like, Yeah, it really is. But anyway, that's the diagnosis story. That's crazy. And the ADHD came back to haunt us. Listen, I really do want to kind of focus on that for the rest of the way. So yeah, what's it? What what are the impacts of ADHD? And type one being together? How does it mess with
Nidia 46:21
very difficult because so we put them on a new medication starting, I held him back actually, with the diagnosis for for the type one. He was supposed to go into third grade, but I wanted to hold them back in second grade because of this new diagnosis. And I knew the ADHD. And you know, my mom, I had to be with my mom and I couldn't be there for the rest of the school year, he probably fell behind in school. So I said, I'm just gonna keep them in second grade. So I did this new teacher that he got assessed all over again. And yes, he has ADHD again. He he started on Strattera, okay, which is like it's not a stimulant. And I, I actually had what joined a Facebook group. And they recommended that and so I asked the doctor and he's like, Alright, let's try it. Well, it did not do I mean, the teacher would be like, Yeah, he was a little better today, but emotionally that I'm scared of that he would he kept he started saying things like, I wish I was never born. And I looked at one of the side effects is suicidal tendencies. And I'm like, Oh
Unknown Speaker 47:41
my goodness.
Nidia 47:43
steered clear. I'm like nope, I'm out. I don't care if it's a non stimulant. No. Right. And so after that, I don't remember who suggested vyvanse I think it was also a face in the same Facebook group and so I started him on vyvanse and that has been the pill that's worked for us that's been the medication that that works for him and his brain chemistry or whatever and sometimes again, it does take away the the appetite which it helps with the type one it actually it does because you don't eat you know your blood sugar's don't go a pie and so it helps in in that manner. But But what's interesting it also doesn't help that Tim because he's he's high cuz he ate cereal and I didn't Bolus him enough. Oh, I'm so angry. What do you mean you're angry? I am because we have a endo appointment today. And so
Scott Benner 48:47
I always I always amazed me is that people think that their endo is not gonna understand if your blood sugars type perfect. They see all your reports they know it hasn't been perfect.
Nidia 48:56
Yeah, no, no, it's not that but I think like oh my gosh, you know when he takes his agency This is gonna affect it. And and I've been doing such
Scott Benner 49:03
Yeah. All right, today will affect the next day one. See not this one. Don't worry. You'll be alright. Yeah.
Nidia 49:09
And but my end our end oh my gosh, she's amazing. We love her. But she's military. So I don't want to put her in your list.
Scott Benner 49:18
Oh, yeah. I understand. Well, so you tried three is it three or four different medications to get to the vyvanse
Nidia 49:26
this This is the fourth one yeah. vyvanse is the fourth one so yeah, it's not a you know. Try this at work it's the you also have to be a judge like okay, well is he improving in school and behavior like you know, focus and behavior or is it just one or is it yet a side effects are is it worth it? And to us the vyvanse is worth it but like I said it does affect his appetite and and that could be difficult because you know, Basil insolent is Like, the more you eat, the more you'll basil you're probably be probably need. That's what I've seen on him. So like when he doesn't, and I don't sometimes I don't give it to him on the weekends because I want him to eat. Although he's really, he's chubby now. So, you know, it kind of helps with weight control too. That's horrible to say, but it really does because he eats a lot and he and he does exercise but not as much and sometimes, you know, with the, your sugar being all over the place. You're like, okay, exercise. Okay, wait, don't and so
that consistent kind of thing. Yeah, it's
Scott Benner 50:36
it's interesting. It's it's listed as a stimulant that can treat ADHD and a binge eating disorder. Oh, wow. That's Yeah, okay. Well, yeah, I can see that. Well, so, my gosh, first of all, are you okay? Because Yeah, yeah. Oh, good. Because I would I, how are the other three kids? anything going on with them?
Nidia 50:57
Oh, God. It's so funny you asked because right now I'm very overwhelmed. My teenager is having issues with IBD. That like he's doctor hasn't diagnosed him with IBD. But it's kind of there. And, you know, he got a colonoscopy. He got an endoscopy and inflammations there. And he said, he doesn't want to call it a, you know, krones yet, because he doesn't kind of want to label him yet. Okay, so he's giving him some medication to see if it kind of goes away and see what happens. But yeah, that one, yes. And my seven year old, he's, he's got like asthma. Like, and I wouldn't call it like real true asthma. Because I know what true asthma is. This is more like he gets a cold. And he's like wheezing right now, because he just got a cold. He's got that then. And there's food allergies to peanut allergy with him. And then my teenagers got food allergies also. Just, it is a lot.
Scott Benner 52:00
So IBD, asthma type one, ADHD, food allergies, does your husband or you have any of these things? No, anybody in the family line that you're aware of? There's a lot of type two, like his mom, side of the family is heavy type two, she's got type two, she's in. What do you dialysis, end stage and stage renal. But no other like celiac or thyroid?
Nidia 52:33
thyroid? Yes. My mom. hypo, my dad. My dad's brothers have type two. And it's not it does, like it's not from obesity or anything they'd look, they just have their weight is fine. Yeah, it's like type two diabetic but they're, you know, how type two is always associated with weight and all that. But they're not they're, I mean, they're not super obese or I think there, you would look at him and you think they're fine.
Scott Benner 53:04
There's somebody who's weights not a good indicator of whether or not they have type two diabetes, it's just, it's not to think about it. But there's a lot of like, so look. ADHD, you know, is talked about as an inflammatory problem, which then leads that to be autoimmune food allergies can be autoimmune type one is autoimmune asthma, by the way is autoimmune. and so's irritable bowel. So you guys have like, a cornucopia of things. Okay. Yep. Hello, we dodged them. You and I, I mean, my husband, and I've touched them. I don't know. So I don't know anything about this. But it makes me wonder if it's sort of like one of those things like recessive and dominant genes and to have one get together and make another I don't know if that's possible. or not, maybe I might be talking out of my body. But that's fascinating that they have that there's so many kids with different stuff. And yet, you guys are just untouched by it. That's really fascinating.
Nidia 54:08
It is weird. But you know, let me tell you something. My grandmother on my mom's side, she lived to 106. So and with no medical issues, she's
Scott Benner 54:19
she sounds
Nidia 54:21
bite by the weight, but she was while they call it Indian, but Native American from Mexico. And so, you know, got a lot of I guess good blood or
Scott Benner 54:35
with people. That's, um, that's a real crazy line. It really is. That's a lot. Let me let me mention something else. My grandma. Yes. I'm sorry. No, I meant Go ahead, please.
Nidia 54:53
Oh, that my grandma had my so my mom told me the story. She had like a Kids, but she had other kids that died, you know, as kids. But the one that that ended that was back then it was like normal that they died before the age of three, let's say. But she had one that died at the age of eight. And I, you know, my mom's gone. So I can't ask her and she'd never knew about Sunday I was, you know, because it happened after she passed away. About that son of her brother that passed away at the age of eight. I always am like, always thinking about that, could it have been like, type one?
Unknown Speaker 55:33
Yeah, and they didn't know,
Scott Benner 55:35
could have been any number of these things. Honestly, without without medical intervention. You know, we talk about it here sometimes, you know, in our house. And I'll say it a ton on the podcast, but three of the four people in my immediate family would not be alive without modern medicine and intervention. On some love or not, my wife grew up with terrible ear infections that clearly 200 years ago would have killed her. I had my appendix, you know, went south on me, which before surgery would have killed me. And Arden has type one diabetes, which would have you know, by the way, I know this is crazy, but I was right by mistake. And now everyone's gonna probably think I'm an idiot. But Arden was diagnosed on August 22 2006, which was very month, a month after her her birthday, but I didn't remember that. When I was talking to you Just now I had to look on my own blog to the first time I ever wrote something on a blog, which was August 16 2007. And I started off by saying, you know, that I haven't been able to sleep for about a year. And then Arden's about to be a type one for one year on August 22. And then I'm starting a blog that crazy 2000 because what is it? That's 2021, isn't it? You won't do the math on that. Hold on. Three gets you to 1020 one's 11. Yeah, at 11. Free, you get 14? I've been doing this for 14 years. Yes. When the blog has she's 16. So yeah, she was too much. So you you knew better than I did. I had to figure it out. It's interesting. You can figure out my stuff, but not your own stuff. Yeah. I'm sitting over here trying to figure out everything is happening to my family as well. It's almost twinsies Yeah, well, I think we all are. And it seriously can be it's completely, I was gonna say can be overwhelming, but it is overwhelming. Because, you know, you look out the door and you think, well, that guy's okay. You know, I look at my neighbor, my neighbor seems fine. You know, probably doesn't have any problems in the world talking to him one day. He's had hypothyroidism for like, nine years. The guy is like, yeah, you know, my other neighbor. Like, literally, they were, you know, close, as close to these people as you can beat up neighbors. And if, if one of my other neighbors would never have told me, I never would have known she had breast cancer. Oh, wow. Right. And yeah, yeah, it's inside your home, it's easy to feel like, stuff is happening to us. It's just to us. But a lot of people have stuff like this. And I mean, there's that like, pie in the sky feeling like that, you know, they're, you know, you're a great great grandmother, whoever who lived like 300 years old, but it's just, that's not the norm. That's, you know, it just isn't the norm to live your whole life. 100 years and not get sick ever. No, not anymore, anyway. Yeah. Well, and especially well, especially when you're, you're saying just a couple of generations ago, people were losing their children, like, you know, like, they were losing their iPhone down a couch cushion, just, you know, like, Oh, where's that one where this one, go three, eight, you know, people died. So now you get to stay alive longer, and you find out what happens? You need some medical intervention, you know, and I think that seriously, seriously, though, you have to say, I'm alive. I get to live a life. It's, it's sometimes it's not the perfect one. But it the old there is no alternative to you know, the opposite of being alive is not existing. So there's there's no alternative except to take, you know, the cards you're dealt and do the best you can with them. Yeah, yeah. And I
Nidia 59:25
and I take that, like, that's how your podcast Believe it or not, has helped me see like, not see that but feel that and and push through it and not feel like sorry for myself or sorry for our family. But just and I tell my teenager that because you know, he's going through a lot. He also has like anxiety issues and stuff. And, and I tell him, because he's like, how could other people just enjoy and you know, we're, I'm stuck here and I go, we just got to work with what we have. And that's all And try to do the best that we can with what it is because I tell him you're very smart boy, you know you're intelligent, you will go other places that others won't who might be having fun right now. So you got to kind of, like you say, play the cards you're dealt, because we have other strengths that others might not. And so you you
push through and you,
you know, just don't even think about all the stuff you're going through. Well, you do think about it, but I'm saying, you know, it's okay.
Unknown Speaker 1:00:33
We'll get through this.
Scott Benner 1:00:35
You can't let it weigh on you. And you have to understand too, that the thing you dreamt about, that maybe isn't your dream, you don't mean just because when you're nine years old, you think to yourself, like, Oh, I know what I'm gonna do when I grow up, I'm gonna do this, and it doesn't work out that way. You know, it's funny, when it doesn't work out that way. Most people just pivot. But when it doesn't work out that way, because of a health issue, you feel like it was taken from, you know, like, I mean, yeah, how many kids play a sport, you know, as a as young kids, right? There's most of them. But you know, when you're 25, and you haven't played soccer, since you were 11, you don't think that somebody came along and stole your soccer dream away? You think, you know, it just wasn't for me. I wasn't, you know, it ended up I wasn't a college soccer player. I'm not a professional soccer player, whatever it ends up being. But when you have a dream of doing something, and then a medical thing gets in your way, you think, well, now this has been taken from me. Not not, like, not just that the natural progression of my life didn't lead me in this direction. And it's, you know, I understand, you know,
Nidia 1:01:38
that that really speaks to me, because I feel like I've felt that the diagnose like the type one diagnosis kind of took my career away. Like I was thinking, Okay, when we go back to the States, I will find a face to you know, like a real? No, not that virtual is not real, but like a face to face job as a teacher again, because I loved teaching high school. And I had that in mind. I'm like, yeah, I'm gonna do that. And, bam, type one. No, you're not. And that's how I felt.
Scott Benner 1:02:14
Well, no, it's not it's not inaccurate, because it is what happened. I mean, I don't, most of my life is not what I expected. And a majority of that is because of diabetes. Some of it's because of other people's health issues and, and the way they lead you into certainly, it's just, it is what it is, you know, my life did not turn out like a television show. That's for certain, right? Like, I'm not, you know, but kinda though like a movie while you're here. So anyway, I got this really successful podcast I think it's more like a heart. But But no, but you know what I mean? Like it's not just like everybody's not smiling. We don't have a little pot right into the evening and then sit around the fire and you know, then dad comes home and trips over the Ottoman It's not like that, you know, it's um, it's like a real life. It's,
Nidia 1:03:05
it is and it I agree that and also the type one the all these health issues and also they take a toll on on the marriage. You know, I find myself getting so angry at my husband over dumb things. Like what like this, like, okay, like this morning, I go, I grab my coffee. I grab my coffee creamer and I love I don't drink like the regular milk based. I like the the element. coffee creamer. So I buy my own and I buy him his french vanilla. You know, gross milk based one. And mine is almost empty. And I'm like, Why has he been using my coffee creamer? I bought him his it's right there. It's full. And
Unknown Speaker 1:03:52
things like that.
Scott Benner 1:03:53
Yeah, I want to tell you something right now. Okay. When you started telling that story, every married guy listening was like, oh, here comes interestingly, the women listening who are married, or like a DD is crazy. I would never do anything like what you all do? I just want you to know that we all do. Like everybody, every time you hear somebody else say something and you're like, Ah, that's weird. You do the same thing. You just probably do it around something different media. You're crazy. Let's let the guy eat the coffee creamer and just stop it. Don't worry, buy more I know just go buy more. But no, but not not listen, not crazy. Maybe crazy to believe that somehow this is going to change. You know, I mean, like that's, that's the interesting thing. Like, I mean, how many times do you need to see something before you say to yourself, I should lose this expectation? You're right, you're right. That's all. I don't know what to say. There. That's Um, I think that happens to both sexes. In a in a in a standard marriage between a man and a woman. I think that I could get your husband on here and he would tell 25 stories and weird things. Oh, yeah. Right. Yeah, and you can do the same thing. So I don't know.
Nidia 1:05:04
Yeah, we also like we we also fight. Well, these see that those little arguments then go blow up into bigger fights and and for example I don't even know what we were fighting about but but the fact that I take care of Santiago and he has kind of nothing to do with it came up. And I don't mind that
Unknown Speaker 1:05:26
come up when you brought it up by the way. I don't remember. I don't think I did, because I think he might think
Scott Benner 1:05:33
he started the conversation by saying, you know, I'm not really involved in this diabetes thing at all. No, that's because that sounds like something I shut up about if I was so
Nidia 1:05:43
think so I can you believe I don't even remember how it came up. But he's like, it. He it really ticked me off. He's like, you take care of him because I let you. If I took care of him, I'd probably be doing a better job than you. Oh.
He pushed my buttons. Yeah.
Scott Benner 1:06:03
Well, you know, you should do don't buy him anymore. Kramer and hide yours. That's what you could easily hide it. I didn't live without creamer for a couple of weeks and see what happens.
Nidia 1:06:15
We just jabbing at each other that day, you know, and then but he really knew how to get to me that day. And I was so angry. Yeah, no, I think I think I told him, I said, Oh, make sure Santiago Bolus is for this. And I said, Oh, but you don't know. Because we were using loop actually. And so he was very against it. And he's like, it's not FDA certified, blah, blah, blah. I said, That's okay. I think I know what I'm doing now, you know, after three years and a lot of podcast listening. And he's like, it's not FDA approved. I don't I don't want to do that. And so I tried it in November that loop. And then it was overwhelming back then. Cuz you know, you've said it. I heard those podcasts with the first one with Jenny, where you said, If I didn't have you, I'd quit in a week.
Scott Benner 1:07:08
Oh, yeah, I wouldn't. I wouldn't have done it for six days. I don't think without having somebody to like lean on.
Nidia 1:07:14
I quit in a week. Especially cuz I think I tried to show him something. And he's like, I'm not learning that it's not FDA approved, or something like that, you know, some flippant thing. And I oh my gosh, I was so angry. And I tried to do it. But he is, you know how you Bolus food and it kind of goes high and, and I tried to open and then his, his canula went off. And then his blood sugar was like 400. And I was like, Oh my god, it just went really bad. And then I didn't have support from him. So I was like, forget it. So I quit. But then I came back to it. In December,
Scott Benner 1:07:51
I think we've learned here in this hour is that if you're by yourself, it's lonely. And when you're other when you're with other people, you find yourself thinking, I wonder what it would be like to be alone.
Yeah, but I mean, I would never I would never want to kill him and put him in a small box. That's not what you were gonna say. Is it? No, no, of course. You know, listen, your we would I don't think I've ever I want to leave them. No, no, I'm not saying that about how long you've been married. 20 Okay. 298 Yeah, you're in the 25 year range. Almost 20 Yeah, this 2122 2323 years. Yeah, all you have to do is make a feel like the next five or six years and this will all just fade away again. Then you can just say you can just stare at each other until it's over. It'll be nice. Finally, there'll be nothing.
Unknown Speaker 1:08:54
I guess. You
Scott Benner 1:08:57
know, I think it's interesting when, when you've been together with somebody for so long. And it's so it's just, there's a decision you make in your head when when you start having like, my wife will say something and I'll have to think to myself like do I want to fight about that? And then most of the time I go No, I don't and then I just you know, I artfully move past it. I'm sure she does the same thing with me. But there's that once in a while where something gets said and you're like yeah, I'm gonna plant a flag on this hill and fight for a while.
Nidia 1:09:28
Yeah, yeah, you're right you're right. That does happen. I'm like okay, whatever. He's angry or Yeah, he's tired from work.
Scott Benner 1:09:36
Let it go. It never end it never ends well, I have never once thought let me fight this fight and then at the end thought well, that went well. I'm glad I did that. Never once it's never happened to me. I've always regretted it afterwards. therapists so Okay, I won't buy is your phone. Oh boy. Did you by any chance unlock your iPhone. It's making a weird that I'm getting a weird noise on your end.
Nidia 1:10:00
Let me see, let me see Oh, no, I didn't. Well, then I was on the chair that might have been might have been making some noise.
Scott Benner 1:10:07
No, no, this is very electronic noise, something's interfering with this all of a sudden. But anyway, it does. You know what, it's good. It's a, it's a good time to say, goodbye anyway. Because we've been at it for a while, I want to say this nidia I really appreciate you coming on most people who end up coming on telling their stories about things like ADHD and diabetes, or just recently I've been having a conversation with someone about like, Oh, I need you to have a talk to somebody about PCs. I want everyone to realize there's, there's no, there are no like people with magic answers out in the world. And, and you have people on to have these conversations, to find similarities and maybe be able to pick through them and you know, get a couple of ideas here or there, or at least just feel comfortable that somebody else is living the same existence. But there are not a lot of magic people with answers. Like, I think that's a construct of, you know, like major media, like, we're going to bring on this expert. Now he's going to tell you how to do this, and it just doesn't really exist, whether it's, you know, ADHD, or type one diabetes, or anything like that, you're just gonna hear ideas, and hopefully, some of them are gonna meld into your life. And once in a while, we get super lucky, right, and we find Jenny, but for the most part, you know, when there are issues that have so many varying approaches, I mean, look at this with ADHD, you know, for medications to find an answer for your son. You just got to hear the stories and figure out what's going on. But, you know, I'm guarantee you that this started with EDS saying like, I hope you can we have an episode with someone with ADHD, I need to hear from somebody with ADHD. And she turns out, she's the person you're hearing from, so I really appreciate you doing it. No problem. And one more thing I want to add here is your your voice is completely bonkers. If you if you really have something you want to say I'll just connect and read and we can reconnect and try it. Sure I do. Okay, so, alright, say hello. Hello. There we go.
Nidia 1:12:09
Alright, I just wanted to share something with you, please. Yeah. So I'm in a, I'm in your Facebook group. Am I making three for type one Facebook groups? And I'm in this one that call that's called T one D moms? I think. So, you know, they ask questions, you know, or you ask questions, and they answer and this young lady, she asked a question, she said something about, you know, my daughter's always in the two hundreds. I'm not comfortable. And I replied, oh, you probably just need more insulin. And she had said that her doctor said that for her daughter's weight that that was you know, what she was given was enough, was supposed to be enough. So I that's what I said wait, doesn't? It doesn't matter how much she weighs? everyone's needs are different. So she ends up messaging me, like privately. And we start you know, talking. And I I did a Skype on her. Talk to her. And I'm actually helping her. Yeah, we upped her Lantus. I mean, obviously, I tell her, you know, I would do this, if I were you. And you know, I've heard and I told her about your podcast, she listens now. Oh, hello. And her name is Matt aisyah. And she, she's like, Yeah, I don't mind you using me. And I just wanted to talk to you about you know, your podcast has not only helped myself, but now I feel like you do like it made me feel so good. I I'm you know, upping her lantis and helping her with all these boluses has really helped her daughter, I think she was at an 8.5 a one c last time she went three months ago. And with just like, almost two weeks of help. She just went in and her a once he was 7.5. And it was Yeah, it was only two weeks of me helping her and she said she used to be in the two three, you know, 200 hovering on the two hundreds and her nurse practitioners like don't give her insulin, you know, three hours, every three hours every three hours do the correction and don't feed her for more than 45 carbs and and I said that's baloney feeder whatever you want,
Scott Benner 1:14:22
as long as her child had diabetes 10 months, okay.
Nidia 1:14:28
Well, and but but the the nurse practitioner was not being helpful. Not even in this last appointment she had she says she said the nurse practitioner was like, Well, no, don't give her insulin. Unless she eats and don't correct all the after three hours, only 45 grams of carbs and she didn't even give her on the pod. I'm thinking in Spanish. I said that is a prescription. Okay. And so she goes to the class and I'm just kind of like, Oh my gosh, I'm so lucky not to have You know, to our endo, you know, just gives me what I want. And here's this nurse practitioner not letting her get what she wants. And I understand, you know, some, she wanted to give her the in pen just to track her her information, but I was like, don't pay for something that you're not going to use you want the Omnipod just get the Omni pod
Scott Benner 1:15:24
that interesting. Yeah, I mean, in the beginning of diagnosis, you, you get sometimes sketchy help. And then it takes a little time to figure out if that's going to be the quality of care all along, or if they were easing you into it. You know, I never know which you'll never know what it is in the beginning. But it's wonderful that you guys found each other.
Nidia 1:15:44
Yeah. And and so thank you, you not only helped you know, me, and you, let me tell you just one more thing you help people not only like with the management, but for me, it's emotionally. Excuse me, you you have helped a lot. You know what, and I can't tell you specifically how but all of the things that you say, just really helped me get comfortable and I've gotten comfortable where I'm at, I might even consider studying to be a diabetes educator, maybe?
Scott Benner 1:16:15
I'm afraid you're gonna find time for that. But that'd be amazing. If you did it. It might happen one day. Listen, that is very kind of you to share with me. I really appreciate it. I'm problem. I'm so happy that the podcast is been valuable for you. And then it allows you to be valuable in somebody else's life. That is really the goal is that for people to talk about this in a way that's not restrictive, to their, their good health outcomes. So okay, thank you, buddy. Know, you're I can't believe you're thanking me, but that's very kind You're welcome. means a lot. I don't know what it makes me feel. Yeah.
Nidia 1:16:50
Thank you. Well, just again, thanks again, for everything, all your experience, all your years of experience, and just kind of giving it out for free. No
Scott Benner 1:16:59
bites, Lisa. Hey, there's advertisers. I it's not it's not like I am, you know, I'm getting paid. It's just not by you. I feel very strangely about I don't know if this is not really a critique about others. But there's a real trend in social media right now to charge people for the things you know. And I just don't, I don't have that in me. I don't understand. I could never do that. Like I could never say like media, guess what, for just $69 a month, you can be in my facebook group and ask people like I love a zoom meeting. And it just I don't get all that like I'm not. Maybe it's just generationally misses me. But I have more of a capitalist mind. I think if I put out something that's quality, I could sell an add on it. And then you can get the information. I can be covered for my time and everybody wins is how it seems to me. So yeah, that's that's been the case. Yeah. Now I and being completely clear, prior to the last couple years of the podcast, I I've never taken an ad in my life. Like when I started that blog back in 2007. People offered me ads. And I was like, Nah, that's okay. Like, I don't like I didn't need it, to do the, to make the blog, like, you know, but the podcast has become an amount of time that that, you know, I had to give away other ways that we were supporting ourselves. So Oh, yeah. So it ends up being what it is. But I really appreciate that. It's really kind of you. I'm thrilled. Honestly, I don't sound thrilled because I don't modulate my voice around this because I usually, I usually just get embarrassed, but it's really cool. Really cool. I just wanted to share that. I thought that was Yeah, I thought that was pretty neat that she trusted me to guide her. And and they're doing great. Well, well, you know what happened? You get desperate enough. You're just like, all right. Say it again. What? No, it's Yeah,
Nidia 1:18:50
I think she was like she was she knew she could do better. And I told her she's a great mom for drawing. Yes. for searching and trusting somebody.
Scott Benner 1:19:01
I agree. So I want to wish you a ton of luck and everybody in your house. A lot of luck. And how long have you been in Virginia? Now?
Nidia 1:19:09
This is our third No, wait. We're going on our fourth year now. So yeah, we extended so it was supposed to be only three years. But with the diagnosis and everything. I'm like, I know I had enough. Let me just stay somewhere for like six years. A question
Scott Benner 1:19:24
before I let you go and a comment. So my question is, how did it end up buying a house sight unseen did that workout? It did? Okay. We love the house. Yeah. And a long time ago in our conversation, it's gonna be 45 minutes ago, you were trying to come up with the word impulsive. And you stopped and you stopped to find it. And after you found it, you said thank you out loud. Who were you thinking? myself? Oh. I just wanted to make sure it wasn't a voice in your head. That's all I
Nidia 1:19:58
know. You know, I'm filing So like I like I, sometimes I forget words. Yeah. And I search and I search and I'm like, Is it
Scott Benner 1:20:09
so I I imagined that's what you were doing I just didn't know who you thanked at the end I was like I didn't know if you had a friend named Patty that lives on your shoulder like thank you Patty. Crazy that's just my little wellness check for you seem like you're okay, so Nevermind. All right. Well, first of all, let's thank media for coming on the show and doing such a terrific job. I had a great time talking to her. I hope you enjoyed listening. I also want to thank touched by type one, and remind you to go to touch by type one.org or find them on Facebook, and Instagram. And then all those series that I told you about, remember the diabetes pro tip series, defining diabetes algorithm pumping diabetes variables afterdark how we eat there are so many to choose from, check them out at Juicebox Podcast comm while you're there, click on the links for the sponsors support the show
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#546 Type 1 Firefighter
Kyle is an adult firefighter living with type 1 diabetes.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Friends, this is Episode 546 of the Juicebox Podcast.
On today's show, I'm joined by Kyle. He's an adult who's had Type One Diabetes for a handful of years. He's also a firefighter. And he is an interesting one. There are a few other things that are interesting about Kyle, but I don't want to give it all away right here. I'd like you to listen to the
Unknown Speaker 0:29
episode.
Scott Benner 0:31
Of course, I'd also like it if you remembered while you were listening, that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, please always consult a physician before making any changes to your health care plan for becoming bold with insulin, have you ever heard that episode bold with insulin? It's the 11th episode in the podcast number 11. Check it out. I've got a little space here. So I'm going to use it up. If you're a US resident who has type one or a US resident who is the caregiver of someone with type one, and you'd like to help people living with Type One Diabetes, but you don't want to get off your sofa. I've got the link for you. T one d exchange.org. forward slash juicebox takes you less than 10 minutes to fill out the survey. And when you do you help people living with type one diabetes, and you support the podcast. It's a win win win.
This show is sponsored today by the glucagon that my daughter carries. g vo hypo Penn. Find out more at G Vogue glucagon.com forward slash juicebox. Since you have to have a meter you might as well get a good one. Try the Contour Next One blood glucose meter find out more about it at Contour Next one.com forward slash juicebox.
Kyle Kondoff 1:57
Just looking to my ptmc my phone my PDM and then I got my my glucose on my watch. So make sure Where's your blood sugar at? I can see it Oh, oh 117 A Here we go. My name is Kyle Kondoff. And I'm a type one diabetic. There's no pressure now, firefighter for going on 10 years now. And just over five years diagnosed as type one.
Scott Benner 2:22
Wow, how old are you? I'm 3232. So you became a firefighter 22 diagnosed around 27. Yes, I got that pretty well, we get that if everybody would just come on with like increments of five for all their answers. I think I would look like a genius. What made you want to be a firefighter.
Kyle Kondoff 2:43
So I was actually a pedestrian versus vehicle. I was the pedestrian whenever I was 19 years old. And the firefighters basically brought me back from the dead, kind of they did CPR and had the defibrillator on me and everything, according to my friends. And so whenever they got me back, they got me in the ambulance and flew me to the hospital and I came back after basically having to learn to walk again. And it was probably about four months later that I decided that you know, they saved my life. So I wanted to save other people's lives. I started off as a lifeguard here in San Antonio at Six Flags, Fiesta, Texas got up the supervisor and talked to the EMTs and medics that were at the waterpark and the park itself. And they talked to me about you know, being an EMT and, and firefighter and everything. So I started on that journey at that point.
Scott Benner 3:45
Wow. How old were you when you were in the accident? That was 1919. What were you doing? How'd you did? Let's just be for a second. Was it you? Or was it the car? What happened?
Kyle Kondoff 3:56
It was the cars fault. They well unfortunately, Texas is a crosswalk state. So he got to be in a crosswalk and everything. So the guy wasn't really at fault. There's problems with the police report, and he said he wasn't intoxicated. The cop said he didn't appear to be intoxicated. But the cop also said that I was wearing the wrong colored clothes from what I was at night. I don't have the clothes anymore because they cut them off at the hospital. Or they're on the scene. But at the same time. I know what I was wearing, because I pictured from that night so it kind of it screwed me in a way that you know, we couldn't sue the guy or anything like that. But turns out that my friends believed us intoxicated. So anyway, it was not a drunk driver but a drunk driver that hit me. And he he actually drove about 200 feet farther down and I guess kinda looked in his rearview mirror and saw all my friends kind of standing around me. And the first thing he did was he ran up on top of wherever we were. I was laying in the ground and everything my friends were dealing with me And the first thing he said was I swear I haven't been drinking so
Scott Benner 5:06
it's always the way to go. I just want to start by saying I don't know how that woman got my bed now honey you ever heard ever heard Dennis Rodman? Explain getting caught cheating. We Carmen electric. Yeah. Have you heard him say that? He said the the woman fell out of the ceiling. He did not know how she got into the hotel room. Yeah. I think you're out of excuses when you go to that. Pretty much. Anyway, um, what kind of injuries Did you sustain?
Kyle Kondoff 5:36
So I actually had a compound fracture my femur, my left femur, and that's where the bone breaks through the skin by it broke right in the middle of my leg. And I had two fractures in my left hip, where the the the bones were cracked and everything, and I had a surgery to put two pins in my hip. And then I have a rod going through my femur. Luckily, I was 19 at the time, and so they didn't have to pull it out. And you know, worry about me growing or anything like that I was done at that point. But I still, you know, still have pain and stuff to this day from that. But then outside an NCL and an ACL tear on my right knee. So basically, I was standing a certain way and the car clip me. And then I had various injuries to my face. And hey, and I had road rash on my hand. And then from where I hit the windshield, you can see scars and stuff, holding cracks and everything.
Scott Benner 6:33
That's terrible. And you are your professional firefighter.
Kyle Kondoff 6:38
Yes, yeah, I've been doing this for over two and a half years now career, I was volunteered before that. But I worked on an oil rig as a confined space and rescue team member and then I was an oilfield, firefighter as well. So now I work for the county area. Two jobs right now,
Scott Benner 6:57
a lot of intense jobs that you have. They're all like very physical, are you incredibly physically fit, or?
Kyle Kondoff 7:04
I'm not gonna say incredibly physically fit. But yes, it's very important to stay fit for our job. I mean, as you know, you know, firefighting is an intense job anyway. So no matter what we have to work out, we have to keep ourselves up to a certain standard.
Scott Benner 7:19
Yeah, so I have the tiniest overlap, trust me, but it's a very tiny overlap with you. But my entire life growing up, my father was a volunteer fireman. And I look back on that time and genuinely believe that 65% of it was a way for him to get out of our house. And, but the other bit was, he really was, you know, like a community oriented person, he really did want to be helping people. And there were times it's funny how it goes, right? There are stretches. When I was younger, where there were a lot of fires, and I don't just mean like, you know, somebody bush in their backyard, but buildings that were involved in, you know, required, you know, multiple counties and things like that. And now there just don't seem to be as many of those types of fires, is that building code stuff? Like why or am I making that up? Or are there?
Kyle Kondoff 8:13
No, you're not? You're not actually making that up. So what I would assume, and this is me not knowing exactly, you know, when your father was a firefighter, but you're talking up in New Jersey, New York area, correct?
Scott Benner 8:25
Yeah. And they can the 70s 80s
Kyle Kondoff 8:28
Yeah, in there. So those were called the warriors. That's actually whenever they had the most fires. That was, unfortunately, we lost a lot of guys on 911. And a lot of those guys were from that era that passed, but they took a whole lot of knowledge with them. And they had a lot of fires. I've been reading books lately about a lot of guys that were in in the 70s and 80s started taking their tests and stuff. But were with the captains and chiefs and whatnot, that that fought during those years. And that I mean that sometimes, you know, five, six fires a day, in the bad parts of you know, the cities and areas where it was rundown, and they had vagrants and stuff like that. And it had a lot to do with with New York and the New Jersey area. So it's a whole lot different fighting fire up in the northeast than what it is down here in Texas.
Scott Benner 9:19
not crazy. I just have to say that I you know, I realize you're a professional at this point, but it's amazing to watch a siren go off, and a salesman and a trash truck driver. My dad was a you know, a man who took care of machinery and a rubber molding factory and, and you know, these people would all just sort of come together and they jumped on a truck and rode to a fire and took care of it like like professionals it was and they did a lot of training. I tried when I was 16. And I did it for three years. And I had to do hundreds of hours of training. Just to you know, just to take the thing off my helmet that made everybody think I didn't know what I was doing just so they maybe give me a chance to try something, and it was an incredible thing to help other people, and it's time consuming. And I don't, I don't imagine that people who, who live around paid fire departments realize that, that a lot of the country is covered by volunteers.
Kyle Kondoff 10:15
So it's actually 70%, around about 70%. volunteer in the entire country, there's very few major metropolises that have, you know, the the professional career firefighters, we're all professionals, you know, the careers and the volunteers, guys, we all terrain, you know, exactly how we can, to the best of our ability all the time, and you might see some putting in a little more effort than others. But at the same time, you know, we all have to realize that we've got a job to do. And so it's really important. But as you were talking about the training, we have continuing education, where we're constantly training on shift, trying to do some sort of training all the time. So
Scott Benner 10:59
I just, I will never forget, I've tried to pass this ideal on to my kids, and I don't know that I've ever done it well, but the first time I was at, at a training academy, and we were going to go into a building, so this building is just this concrete shell so they can burn it over and over again, right. And, you know, we entered the building, the fire was on the second floor, we send it the stairs, we get to the top of the stairs, and I've never, and I don't think I'll ever see anything like it again, it was like being inside of a giant pizza oven. Every wall and the ceiling was covered in fire. It was just everywhere. And and, you know, and everyone's training except for and so there's there's nervousness. And so, the person lugging the hose just drops it and you hear it go down the stairs, down each step, just all the way down, you're like, Okay, you can just hear the nozzle just tumbling down the stairs. And so in that moment, the four of us that didn't know what the hell we were doing, you know, we're like, what do we do? And I think one of them said, I'll get it the rest of you stay. And so somebody hustled to it brought it back. And for you know what, I'm gonna be honest, how was probably 25 seconds. The without the water on the fire the room just it was it was just done. Just it's indescribable. What that much fire look like. And I just thought I'll never forget how, how awesome the power of it is. It just was, it was insane. Then the water headed, it just started to quell and you were like, Oh, my God. And I got out of there. And I thought, why am I doing this. But I think there's a large part. And we're gonna move on in a second. But I think there's a large part of the fact that I don't panic around diabetes, that comes out of those three or four years that I spent doing stuff like that, because I was around things that were dangerous and dead bodies and being awoken at three o'clock in the morning, and then suddenly having to do something that's sometimes physical or thought, you know, thoughtful or, you know, you're, you know, you're sound asleep, and five seconds later, you're racing down the street in this giant truck. And so I've seen some panicky things. And I know the difference between something to panic about and something not to panic about. I was wondering if you see any correlation between that and how you handle your type one?
Kyle Kondoff 13:23
Absolutely. So I think that that is something that I didn't address. For the longest time, I didn't realize exactly, you know, growing up, we're all raised differently, we're brought up in a certain way. And even I mean, I have a sister, you know, she's a little bit different than I am and the way that we were brought up, but from family to family, everything differs. And I think that's how we have to think about it with our diabetes, because for so long, I've tried to show people exactly what I do for my diabetes and how I take care of it and how I've achieved my success. And there's still there's good days and bad days everybody has. And I think there's the panicking part, though, exactly what you're talking about, you know, I can, because of the way I take care of myself, and because I'm not panicking, I can be sitting on the scene and I'm 65 and I'm like, Okay, I'm gonna get a glucose tablet. And I'll address this a little bit later, you know, but right now I have to worry about this fire, I have to worry about this medical patient, whatever the case may be. And kind of the same thing with highs. If you know we're eating and I've given insulin, most of the time, I don't give insulin before I'm eating on the job. But if I've given insulin, then I'm not going to freak out. I'll pop a couple of glucose tablets and go on the call and you know, I'll deal with the low or the high later on, I'll figure it out. But no matter what, it's always an adjustment game. And I think just not freaking out is the the hard part to convey, especially to newly diagnosed I mean, it's very difficult to, you know, be in that hospital room and be at the doctor's office, whatever the case may be and just be explained all this information. You're sitting For four or five hours, and then they give you an insulin and a meter and say, okay, you do it now. And it's hard not to freak out after that. So you know, that's why we say that people are in their honeymoon phase. And, and they're, you know, as firefighters were probationary firefighters, I called the newbies that are coming in probies, because it takes some time to learn, they've got to learn from everybody else, they've got to figure it out for themselves, figure out what the carbs are going to do figure out what the protein is going to do figure out everything, and, and make adjustments, and it's going to take some time, it's not going to happen overnight.
Scott Benner 15:34
I can't, I can't agree with that any more Actually, I just think that there's, there's such a, there's such a line to be drawn between, you know, a lot of people don't have this experience. But you know, I was only ever a volunteer, and, but I lived just across the street from the firehouse that I that I worked at. And so we used this a long time ago. I'm pretty old. Now, Kyle. But we used to have these, um, these little like squawk boxes in our houses. And I don't know how they worked. But when the county you know, set off the tones that that triggered, you know, the siren back at the Firehouse that got people to come to the files, they would also set off these little boxes in our in our houses. And they would just give off this a really loud pitch squeal that was just, it was frightening if you were asleep. I mean, it would scare the hell out of you every awake, right? And so you're dead asleep, suddenly, on your feet, you don't know how you're in close, I just run across the street, I'd be in my gear and waiting as people came up. And Moments later, it's four o'clock in the morning, and you are literally driving down the street there, you know, lights going, you don't need sirens, hopefully that time of the morning. And there's this and you're listening to the radio and someone's explaining to you what's what's about to come when you get there. And you're like, Wow, I've only been awake for 10 minutes, and I'm pulling hose off a truck and that buildings on fire and all the neighbors are standing out here. And there's no time to react to how horrible all that is. It's just like something bad happened. And now I'm going to do the thing I'm supposed to do. And and you don't get to live in the part that the neighbors are living in. You know, you don't I mean, I just think that with diabetes that obviously in the beginning, right? You don't have all the tools and all the training and it's all just panicky. But once you've got it, then that's where I think you see people who have any kind of autoimmune issue actually stuff that they live with all their lives. They just the here's the bad thing. Here's what I do next. And then it ends. And that's it. And you don't have you don't have to get involved in the in the drama that that exists in there for the people who are uninitiated or, or, or don't know what to do next when they see something like that happen?
Kyle Kondoff 17:47
I don't know. Yes, for sure. For sure. No, I hear exactly what you're saying. because like you said, you know, the training and figuring it all out whether it be firefighting, whether it be dying, be diabetes, then you're training yourself, whenever you're a rookie, whenever you're going your first fire or something like that, you know, the guys turning around, and that's why it's a big deal for you. And you know, we have a special dinner, you know, he buy dinner, whatever it is, because it's a big deal for you, because it's your first fire. Well, whenever you get off that truck, or you come around the corner, and you see those flames, your eyes are open wide, and everybody's gonna be watching your back the best that they can, because they know that you don't know at all, you don't know exactly what you're doing, you have to be monitored by somebody else. And I think that's important with diabetes is right away. I mean, we have the diabetic online community, but we've also got our CDs, we've got our endos. And we've got people that we can talk to and figure it out. Whenever we're first diagnosed, I think a huge, huge thing is the diabetic online community. Because sometimes it's difficult to reach a CV, sometimes it's difficult to reach the endos. And not everybody's gonna have the answer that you want on the DLC. But at the same time, there's somebody out there, and we're all going through somewhat of the same thing. So we understand it. And that's the hard part is sometimes it's hard to realize whenever you've been in this for 50 years, five years, 10 years, whatever it is, there's somebody that just got the news yesterday, and you're trying to give them all that information, and you're getting frustrated with them. But at the same time, they're frustrated because they're going through this. So we all just need to sit back and look at it and I think empathy is huge.
Scott Benner 19:24
You have to be able to cherry pick knowledge from people to like you can't just look at somebody and idolize them and say this is the person who knows everything because this person might have very like you know, I'm I keep like flipping back and forth between this and firefighting. But I remember this one guy who just could run the scene, like he was very good at keeping everything together, putting people in places, keeping people working and getting the fire out. And I'd listened to him about that stuff. But there was also another guy that one time got caught in a room and just went through the wall into another room and you're like that no one teaches that. Like that guy's like, you don't even Like he's a different guy. And so you wouldn't ask that second guy how to run the scene, you wouldn't ask the first guy, you know, hey, if you really got stuck in a room, what would you do? Because this guy, Greg just took a pry bar and just went through a wall into a room that wasn't on fire. And I was like, that kind of stuff is, you know, everybody has a thing they're good at. And when you reach out online, there's a little more kind of like mental surgery you have to do because you have to first assess who's who, like, who knows what, and also who's been here longer. Because you can sometimes bump into people who are in the same boat you are, but for some reason to you, they seem like they're knowledgeable. You ever, ever, you know what I mean? Like, you'll bump into a, you go into a group chat, or you'll go into a Facebook page, or you see somebody talking on Instagram, and somebody comes off as having gravitas. And you kind of start listening to them. And then the longer you realize, okay, they haven't had diabetes any longer than my kid has, or that I have or whatever. And it's just very interesting. But you have to cherry pick, some people say amazing things. I watched the thread this morning, that I didn't agree with some of the things that were being said in it. And I thought, there's enough smart people in here like this is going to come to a resolution like this thread will eventually end up being its own little thought bubble that's valuable on this topic. But if you don't let the people have the conversation, then it's just one person swooping in and going, No, no, this is right, I'd rather see the conversation happened. But it can be difficult coming in from the outside to pick through all that information and come out with a good stuff. But that really is the key. Because once you can cherry pick from people, then you've got a real full understanding of what diabetes is about.
Kyle Kondoff 21:46
So I hear exactly what you're saying, I think the important thing is definitely do your research. Because it took me about a year after diagnosis to figure out exactly where I am. Now. I'm gonna say a cuss word in the diabetic community. And that's Dr. Bernstein and low carb. And that's what I follow. But you know what Dave, people that aspect of that's a customer that's that's a bad thing we don't want to listen to that is the attitude of other people. That is to to his followers attitude of very few people that just ruined it for everybody else. I'm talking about people that I've heard that whenever I started mentioning it in a Facebook group, somebody said, Oh, you don't know what you're talking about. or we don't want to hear that that's not part of this group, or, you know, I've been kicked out on Facebook groups because of stuff like that. And that's because other people have taken whenever somebody posted that it's their birthday, and here's a birthday cake, or, you know, whatever it is, they put up a picture of an amputated toe. And they just call people names, and they say you're killing your kids, and you're doing all this kinds of stuff. It's, I mean, I'm not gonna get into politics, I'm not gonna get into religion. But this is exactly what the problem is with social media is the fact that we're just criticizing something that somebody is doing. And we're not providing a solution. You just keep on name calling and everything, we learned this, this kid sticks and stones may break my bones. But words can never hurt me, well, then everybody gets hurt on social media because of the things that they say, and we get kicked out of Facebook groups. But then you give people like me, other people that are doing this a bad name. And the message doesn't get out. I mean, I don't have all the followers that some of the other people have on Instagram, and I'm fine with that. I'm not trying to be super high up there in the diabetic community. But at the same time, I want some of the information that I'm putting out there that some of the other people are putting out there that's working for us to get out. Like you said, I don't want somebody to copy me for everything. And when I first started, people were asking me, you know, what is your correction factor? What's this, I'm not going to give you my numbers, because I may have somebody that goes on there and thinks, Oh, well, that needs to be my correction factor. And that's an issue, because we're not all the same. So our bodies react differently to foods, our bodies react differently to insulin, we react differently, to all kinds of things, I mean, 42 factors that affect blood sugar, I'd argue there's a couple more, let me tell you what, whenever I drink coffee, my blood sugar spikes, I cover it with insulin, whenever I go on a fire, then my blood sugar spikes because of adrenaline, so I gotta not necessarily cover it with insulin, because after the fire, I'll start to come down a little bit. But no matter what we have to figure out what works for us. And it's going to take time overall, like I said, coming in there as a probie. You know, just on day one, you're not going to expect Now, don't get me wrong, as a firefighter, if you come in at 6am for your shift, and we have a call at 605 everybody's gonna be watching your back, and you still have to go on the fire. But that's not quite the way it isn't diabetes, we're not going to just throw you to the wolves and then say, you handle it. We're not even going to give you any advice. You know, there's people out there that you can cherry pick what that information is, but also there's people out there that are just doing bad for the diabetes. community and it's unfortunate it really is because some of the good information doesn't get out there. And some of the bad information gets spread a little bit more to people. And people realize that this is a disease, and I'm just gonna have to live with the highs and the lows and just be miserable all my life. I mean, we don't have to be miserable all the time, we can make adjustments over time. And I know you've proven that you don't have to live a low carb life, you don't have to do whatever you let art and eat whatever she wants to eat. And I know people like Matt Silvio who eats 300 to 600 grams of carbs a day, compared to my 30 grams of carbs a day. And he has an agency and daily graphs that look pretty equal to mine. So there's more than one way to skin a cat, right. And I think that we all have to realize that you have to find what's best for us.
Scott Benner 25:44
So how, I mean, I've been at this quite a while. And it's given me some context for life in general, not just around diabetes. But in social media, in general, is a very small percentage of people. Most people walking the planet are not on Facebook, at all the time like it, listen, they might have a Facebook account, but they're not living on Facebook, I could post something on Facebook right now. And I could with some reasonable assure surety write down the name of the first 10 people I think will like the post. So they're just always there. Or they have it set up so that every time somebody says something, they see it, you know, and when you get caught in a conversation about Ybarra coffee, it gets a great example, right? You drink coffee, your blood sugar goes up, someone else says I drink coffee, it doesn't touch my blood sugar. There's more people that are still don't see the causation between coffee and blood sugar at all, because it doesn't have carbs in it. Nobody ever brought it up to them. So they never pay attention to it, they might live their whole life. Just thinking, you know, my blood sugar gets high every morning around 1030 craziest thing, and never see the connection to, you know, a drink or anything like that. And so when you bring all these people together, the one thing that they lack is the knowledge about how to talk to a crowd, a crowd of people who all have varying realities. And so that's, to me, what ends up lacking in social media, because everyone gets a voice is that there's not one learned person who's kind of leading the way. And I could probably make an argument the other way that you need all these extra voices. And that's how you drag things forward. And it's true. But in the moment, like we're not trying to, I'm not trying to build a bridge 10 years from now, I'm hoping that the people who are listening can just be healthier today. And I'll come out and say I have no trouble saying, if you eat less carbs, you'll use less insulin, and you'll have less variability in your blood sugar. That's almost a short. You know, like, there's I don't know, anybody who can argue with the idea that fewer carbs in a person using insulin makes managing diabetes easier. That just is obvious. But then as soon as you say that out loud, someone hears you're telling me I can't have cake or whatever it ends up being right. And and right. And, and you are reasonable person, you're like, No, I'm not telling you I'm not having cake. I'm just telling you, Hey, this is how we this is how it works out for me. But then, like you said, some lunatic runs in and yells, you're going to lose a limb. And then there we go. And it turns out that in every faction, there's some lunatics and then they all start throwing, throwing Barb's at each other. And before you know it, the story is people online are crazy. When for a year and a half now, I've seen in the private Facebook group for this podcast, that that doesn't need to be true. I see people in there who are have all varying kinds of ideas about management, and I watch them all get along. And I don't know what that is. But I'm pleased about it. And, and that's it and there's no policing, like I don't like there's no What do I even call it monitor people who monitor the face? I don't have that. admin.
Yeah, I don't have that. When anybody, you know, sometimes people will report a post or like this person, and I'll look at an hour ago, I don't know why you lie. Is this a problem? And I just I'm like, No, like I've maybe once or twice people are trying to, you know, pimp their business or something like that. And you're you stop them. But I don't get why adults can't have adult conversations coming from varying perspectives. But it's harder than it than it should be. But I don't think it's impossible. And I like to let the fights play out. I also think that's where Facebook groups go wrong in the defense of protecting one position. They'll like, no, we're not talking about this anymore. I'm like, Yes, and you're a bunch of adults, talk about it, fight with each other. You know, it's gonna stop and normally they don't fight and if they do like I Don't get it like I don't I had a person write me recently and said, I love your podcast. I love your Facebook group, I'm going to keep listening to the podcast, but I can't be in that Facebook group anymore. And I'm like, What happened? So there was one post. That was something political. And it was right around something that was going on in the country that was just a hotbed of thought. And people like they went back and forth about a little bit and I came in, I was like, Look, guys, keep it a diabetes, or like, we're gonna have to, I'm gonna close the the post op, and I let them go for a lot longer. And finally, I just was like, Alright, that's enough. And you close it, and it just kind of drifts away on the Facebook page. But I thought to myself, like, wow, this page has been very valuable for this person for their health. And in one year, there's one conversation that gets political. And that's it for you, you're done. Like, just don't look at that. You know, like, I don't even get that and I'm not I don't understand how somebody can't just not look at something that makes them upset. I don't look at things that make me upset. Seems reasonable for me to avoid stuff like that. But anyway, I, you know, I'm with you. Like I really am I however people want to eat is how they want to eat. I've always come from the perspective of you should know how to use insulin so that however you choose to eat, you can manage your diabetes, because no one deserves to have crazy like, high or low or crashing blood sugar's just because they don't want to eat low carb or they were they do want to eat low carb, but you could eat low carb and not know how to use your insulin and still be in trouble. So you know, it's to me it's about using insulin. What but So, let's go backwards for a second. Tell me a little bit about when you were diagnosed. How old were you? 2227 27 excuse me and how did it come on? Gee vo hypo pan has no visible needle, and it's the first premixed auto injector of glucagon for very low blood sugar in adults and kids with diabetes ages two and above. Not only is chivo hypo pen simple to administer, but it's simple to learn more about. All you have to do is go to G Volk glucagon.com Ford slash juicebox. Je Vogue shouldn't be used in patients with insulinoma or pheochromocytoma. Visit je Vogue glucagon.com slash risk.
When your doctor handed you a blood glucose meter, did you say to them, is this a good one? Or did you just think I don't know anything about this, I just got diabetes and doctor has given me a blood glucose meter, then all of a sudden, this is your meter. Before you know it, you're buying replacement test strips. You're not even wondering if the meter is any good. You just think well, this is my meter. But they make meters. A lot of different ones. Some of them are better than others. This one a Contour. Next One blood glucose meter is really really good, Tandy. As a matter of fact, it's handy. As a matter of fact, it's easy to hold and easy to use, it has Second Chance test strips so you don't ruin a test strip if you hit some blood, but don't get enough. And it doesn't really need that much blood. Plus, it's super duper accurate. That's not a technical term, but it is super duper accurate. Once you check it out, it's possible you'll be eligible for a free meter. They have a test CHIP program. There's a lot of things to learn at Contour Next One comm forward slash juice box. But the one thing I'm here to tell you is that the Contour Next One is an accurate, easy to use easy to see at night. meter that you can use either by itself or with a connected app on your phone to keep track of your doings your goings on your tests and stuff, your data you understand. Contour Next One, forward slash juicebox. Don't just use the meter. Somebody handed you do some research. Get yourself a good one.
Kyle Kondoff 34:09
I was on the oil rig working in the confined space rescue team back in 2014. That's whenever I started the job. And during that time, unfortunately, we were also goes to Louisiana. And I mean, especially knowing what I know now, it was fried food, burgers, pizza, fried food, everything that was easy to make on an oil rig. And we had sodas and we had chips and we had candy bars and we had everything available. The one thing that I wasn't doing a lot of was drinking water, but I was drinking a lot of other stuff. So we would go down and we would work in well the construction guys would work in the hole we would be on the floating rigs with the columns and we would go down into those columns. 250 feet. Well, long story short, there wasn't a bathroom down there. We figured out alternative. And I was going to the bathroom a whole lot more than everybody else. Everybody was taking their snack bags or taking their drink bags. And it was kind of a community drink bag. And at some point, I started taking my own drink bag down. And I had a lot of drinks. And I had a lot of Gatorade, and I had a lot of soda, and I had very few waters. And I would start to run out of things to fill up whenever I'd have to go to the bathroom, because we'd be down in that hole for either four to eight hours, depending on the work day. And I didn't realize it at the time. But I was also having blurry vision that was associated with diabetes. We attributed it because everybody was kind of having headaches and stuff like that, to the welding machines to the carbon monoxide to everything else, you know, that was going on on the rig. And I was taking Nexium for
acid reflux. And the side effect of that is dry mouth. So I'm drinking a lot. So whenever you drink a lot, you have to go to the bathroom a lot. So everything was attributed to something else that was happening. Fast forward to 2016. And I had to have 36 hours of blurry vision. I was working in a hospital at the time. And I mentioned it to one of the nurses I had had blurry vision off and on. And she said you might be diabetic. I said, there's no way. So the next day I went out and my fiance at the time. Now my wife, we were planning our wedding and going to some flea markets and picking stuff up. And I said, Man, that microphone is really blurry. And my wife wears glasses. And she said, What microphone? Now? I was like, Okay, I guess my visions are right. And so later on in the day, we had Sonic and I started feeling not so good. And my vision stayed blurry. And I said, You know what, maybe we should go to the store and buy a meter. So we went to the first store and unfortunately, that's hv here locally, it was the pharmacy was already closed. They require a booth to buy from the pharmacy, not over the counter. And so I had to go to CVS, Walgreens and buy a meter there. And the first check I did in the car said 394. So I texted one of my nurse friends from work and she said, What did you eat? 30 minutes to an hour ago, we had Sonic I had this whatever. And it's funny because the lack of education for diabetes, I don't blame it on her. I blame it on the system in general. She kind of said, Well, you know, wait, another 30 minutes to an hour and check again. Because at that time at 394, obviously on diabetic or pre diabetics, something's going on, because it's not going to be over 200 realistically. And so I checked again, 30 minutes, and it was 402. So I looked at my wife and said, We got to go to the hospital. So we went to the hospital. And they looked at me and said, Oh yeah, you're type two diabetic, we'll give you know two things are fluid to iv boluses. And follow up in your PCP. Oh, here's a prescription for Metformin. 160 pounds soaking wet at 27 years old. And now I'm diagnosed with Type two diabetic. I go to my doctor, unfortunately, my doctor was on vacation. So I saw his colleague, and he said, Oh, ya know, anybody can be diagnosed type two, any age, any size, whatever, it doesn't matter. And, of course at that doctor, it wasn't an endo It was a PCP so they're looking at not Lada they're looking at type two, they're not looking at anything else. Modi, any other kind of diabetes, just diagnosing type two. So they said check your blood sugar once a day, keep on taking Metformin, I'm checking in the morning, for about three weeks, I was having high, two hundreds, low three hundreds every single time I checked, there was a couple times where I checked here and there throughout the day, but it still wasn't even improving. And I said I've got to go back to the doctor, something's wrong. And I've been looking it up and you know, maybe I'm a type one diabetic. So what does the doctor my doctor was back he took one look at me and he said cow, there's no way you type two. We'll do some tests and check and make sure that you know you're type one. And obviously, ever since then I've been on the magical. I used to say magical drug but now it's a hormone. I know it's not even a drug because everybody else's body makes it but magical hormone called insulin and diagnosed type one at that time. So it was a little bit of a rough road for those three weeks. But it was even rougher. Obviously after that trying to figure out insulin and carbs and everything else. I went to some diabetic education classes and everything was thrown at me. And like I said it was about a year later it was right at the end of 2016 whenever I started lowering my carbs automatically because I had kind of already figured out the carbs were affecting my blood sugar, so many little bit less carbs and see what's happening. So So that was off of some diabetes group, stuff like that. And I started going under 100 grams of carbs. Then I saw somebody mentioned Dr. Bernstein. And it was spring break. That year whenever I had finished up his book, and we were going on a trip to Port Aransas, my family and a couple other families, and I was eating completely different from everybody else. And I took my food and I looked at my blood sugar, we went fishing that day. And I noticed that everything was kind of staying pretty steady. And I was actually pretty happy with the progress. And at that time, I was also getting on to the 670. So the big thing about the 670 was the auto mode. And I realized that auto mode wasn't for me after four days, because it just fluctuated my blood sugar like crazy. Now looking back, if I would have done it again, I would have stayed on at least a week, maybe you know, close to a month. Obviously, my blood sugar still would have fluctuated, but it took a little bit of time for the pump to adjust. And I stayed in manual mode, but it had suspend before low. And that rarely needed to turn on for me, because I set my low alarm to 75. So I kind of adjusted here and there. But ever since I switched over to low carb from that first a one C for almost four years now I've maintained the sub five a one C, and a lot of people want to know my grass, I kind of post a lot of that on social media. And they want to know you know how many lows I have and stuff like that. And the doctor assumed right away, that it was going to be that case that I was going to have a lot of lows and everything was going to be problem. But the thing is having a normal a Wednesday in the normal range of a non diabetic is possible. As a diabetic, we just have to take care of ourselves and we have to monitor with CGM. And by checking ourselves if we don't have those CGM multiple times a day and making sure we're not going low, and we can kind of stay within the normal range. It really is possible. I mean, it doesn't, again, doesn't have to be low carb as the answer just bowled with insulin, like you said. And I mean, honestly, I've listened to your podcast now for the last six months. And I started getting more bold with insulin in my head once these get a little bit better to there. So
Scott Benner 42:12
Kyle, my work. Kyle, am I gonna send you a one c into the mid fours? Is that what's the lowest I've ever had? Scott was a 4.2. Wow, that's amazing. Well, so I'm going to ask a question, but I'm not asking him for the reasons everybody else has said have you? Do you get low? Like with what frequency Do you have like an emergency low where you have to address it?
Kyle Kondoff 42:35
Emergency low, I would consider really below 55. And I hit that up about two to three times per month. But it is not dropping dramatically. Sometimes it's even. And I mean, I'll say it extend the heck out of my sensor. But last Dexcom sensor I got 23 days on so I extended it twice. And it was because my sensor was off. So it's not always because of an actual low. Sometimes it's the censors fault. But I've got my captain following me. I've got my wife following me. I've got some friends following me from around the country. And I also have my nightscout app and anybody can follow me and I show them you know, if you're interested, you can follow me you can see it but I explained the lows and say you can see that I'm not really going low that much throughout the day. So again, it is possible.
Scott Benner 43:24
No, no I can I believe it. I'm also going to tell you I don't think as few as you have, I don't think Arden has that many. And and my point is just that is that you are balancing your insulin against your needs. Bait and your needs are what they are because of how you eat and how you live your life. And that's no different than what Arden's doing. It's exactly the same thing that her body has needs based on her intake and her you know her activity and hormones and all the other things we meet that need with insulin you meet your need with insulin you create less need by putting in fewer carbs. And there's no doubt that that can definitely make more stability. Because then you're probably I'm guessing lower basil rate has more of a chance away from food and Bolus to keep you really low and stable. I How much do you weigh now? About 175? Can you tell me what your basil is? per hour?
Kyle Kondoff 44:24
Yeah, so it's point seven, five. And then in the early morning, I do have a dog phenomenon. So I have point eight five for that.
Scott Benner 44:32
I wish I would have guessed out loud because I was right around point eight in my mind based on your weight and your diet. But if you told me that same weight, and you just a just a standard, you know, practice of you know, I don't mix of things. I would have guessed more like 1.4 1.5 maybe ish, but because you're active, maybe you would end up at 1.3 or something like that, but but it's just it's faster. You're just making The need, there's a need, you're meeting it. And you're doing a great job, obviously. What kinds of things do you eat in the course of the day? I guess there's no more potato chip bags, the Pinto no more potato chip, but it was waterbottle. So I'm sorry, sir. Okay. I was trying to think like, you can't pay it back. I mean, you could but what do you do with it? I also I have about 1000 questions about what it's like to work down in the hole all day. But, but, but But first, just what's your what's your, like your meal planning like Now, how do you eat.
Kyle Kondoff 45:29
So most of the times, I actually skipped breakfast. But I've been getting more into the gym and stuff lately. So I've been trying to add more calories, trying to put on a little bit more muscle, so I'm trying to add more protein. So I've been doing some egg cups, because I was doing omelets before and I had like an omelet mix and stuff. I'm meal prep before where it gets really hard to cook at work sometimes, because the calls and stuff, microwaves my friend. And so I just chopped up some onions, tomatoes, peppers, stuff like that, and throw in some sausage, and kind of mix it mix up some eggs, use muffin tins and make some egg cups, about six of those for breakfast, sometimes a yogurt with it. And then for lunch, I use solo bread, or different kinds of low carb bread and make some sandwiches. I mean, I can do lettuce wraps. I can do things like that. But there's capabilities. And that's the other thing too is like low carb, and keto. There's plenty. I mean, this is like unfortunate to say it was the perfect time for me to become diabetic. And start into this lifestyle. Because there's so many things that have happened in the last five to 10 years for the low carb and diabetic community. I mean, Atkins was the thing years ago, a lot of people were doing it, but you still had to figure things out. And it wasn't so many products. And then of course, sugar alcohols weren't always good for you and stuff, or they just made you go to the bathroom all the time. But then you had all these keto products come out. And some of them are good, some are bad, don't get me wrong, a lot of things, say keto. And they still spike my blood sugar. And I'm like, Hey, guys, just so you know, this is not something you should use, because this is what we're trying to avoid. But do whatever you want. And then other times, it's like, I'm just a meat and veggies kind of guy. So I'll have a steak I'll have, you know, some salad, I'll have some chicken wings. I mean, it's just finding variety in there. Most of the time, we eat about 20 to 30 same meals in our lifetime, in a period of time as humans as a low carb keto guy, I've counted and it's about 15 to 20. So I really haven't missed that much stuff in there just eliminated a lot of the carbs. And a lot of the bad cards, I haven't eliminated the good cards. I mean, I've got plenty of veggies, I do have green leafy veggies all the time. So
Scott Benner 47:49
no, I listen, I got I'm trying to think if I was in the mind, maybe like early 20s and wanted to lose weight. And we I did Atkins to lose weight. And it worked terrific. You know, I mean, like I buy limited carbs from my diet, which ends up it's funny when you think about it, like they all have names. Now, I was saying this to I recorded with Susan about how she eats, it'll come out probably in a month or so from now, which will now confuse everybody because yours will come out after that. But and Susan's, she's, you know, very low carb person. And she, she meal preps really well. Like she just does a really good job of making these these new, like interesting meals, and that are low carb and everything. And, and, and I and I said to her, I was like, you know, we, we call everybody wants to call how they eat something like they wanted to have a title or belong to a group or a club or something like that. But in the meantime, if you eat if you if you eliminate carbs from your diet in America, you're basically eliminating, like rice and pasta and potatoes and you know, and things that come in a bag or a box, which then basically eliminates fructose and sugar and stuff like that just by proxy because you're not eating those things anymore. And what you're really saying is I'm eating more natural things that aren't wheat, and potatoes and rice. And I mean, obviously there's well, way more to it than that. But I mean eating keto, but does that really mean you don't mean? Like, like, I'm low carb, but does that really just it's just you're just eating certain things. And a lot of the things you're eliminating, honestly are, I think are things nobody should be eating to begin with. I yeah, you know, so I have a basic idea about food that it should be able to, within a couple of ingredients break down into things that are obvious and identifiable. That's just sort of how I think about food. You know, I don't eat low carb, but if I make a pizza for myself, I can see that I have flour, salt water, there's a little bit of cheese, there's some tomatoes, there's some garlic, and you know, I don't know, maybe I'll put a sausage on top of it. At least those are the things like the only mean like you start looking at bags, the things that have 50 things inside of them. I think that's when Really get in trouble, not about blood sugars, but more around health in general. It's just that that just seems to make sense to me. You know, and people have said a different ways throughout time like you should be able to pronounce things your eating is one way they used to talk about it. I think it's amazing. How long have you been eating like this? This has been coming up on for years and years, is never once called, Please be honest with me never wants it, you think to yourself, I really wish I could eat. Like there's not something you miss.
Kyle Kondoff 50:31
You know, honestly, whenever I think about something that I miss, I kind of find alternative ways to make it. And that's what I was getting. Whenever I talk about products and stuff. There's low carb donuts, there's plenty of low carb cakes out there, we can make them fresh. There's box ingredients now with swerve and different types of stuff like that. They just had dunkin donuts. And Shipley the last two days at the Firehouse. And I didn't crave them at all, there's a certain amount of time to that our bodies adjust whenever we go low carb and keto that it takes time for you to get rid of the sugar craving. And most of the time, it's close to two months. But after that, you just you kind of lose the cravings. And sometimes whenever you look at certain things, almost makes you want to get sick, because you're like, oh, that doesn't even sound like it tastes good anymore. It's just it's too sweet. I'll tell
Scott Benner 51:20
you as I approach 50, I can I can say for certain that stuff like that, like cookies and cakes and things like that, I don't really I would not, I'm not interested in them with a frequency that I would have been at a younger person. And I don't even know if I was interested back then. Or if I was just kind of broke. And so I grew up in that like, eating at convenience stores on my way to work kind of vibe, you know, like that kind of thing. Nobody was really cooking or prepping meals or anything like that. And I wonder too, if people realize that as you get older, you sort of don't you're not as hungry to begin with. I don't know if that, you know, they just are like, yeah, I think I just like I really do wish I used to say this all the time. But I really do wish eating was like at the beginning of the Jetsons where they all sit down and eat that that little pill, they cut it in half and eat it, you know what I mean? And then they're okay. But there's part of me that just wishes food was like, but, you know, I just don't, I don't know that you realize that. You're not gonna, if you're eating a doughnut right now, and you're 35 like, you're not going to be eating a doughnut, when you're 55 for one reason, or the other, your liver is going to start getting fat and your doctors gonna tell you to stop or you're gonna, you know, start gaining weight, you're gonna wish i got i gotta stop. Like, it's not, it's not a sustainable way to eat forever, for certain, but at the same time, I have had some really good times eating that food in the middle here. So I don't know, like I think of it as a personal choice. I think of all this as personal choices. I just wish people had all the knowledge they needed to make the choice, because in general, we just grow up eating whatever somebody puts in front of us. And then that becomes a thing. I mean, you listen to you, you're down in the hole working, it sounds like you were eating like out of a garbage can almost right, like, and how old were you at that point? That was 2025 26 you don't get diabetes, you think you ever changed the way you eat?
Kyle Kondoff 53:15
You know, that's a hard question. Because I've actually thought about it plenty of times you're mentioning, you know, whenever we were eating that stuff, there's actually a picture whenever I was volunteering, of the guys taking a picture of me whenever we came back from Sam's Club, I was staying at the Firehouse of time, I had lost my grandpa a couple months before. And so I was kind of living at the Firehouse and I picked up one of the Sam's Club thing of donuts, I picked up two loaves of bread. I picked up a cheese ball and a cake and a couple other things. I think only one thing in there was not major carbs, I might have had lunch meat in there, you know for the sandwiches. But no matter what it was just like, this is what I used to eat. And I'd share that video, that photo on social media and stuff during National Diabetes Awareness Month talk about you know, so my whole lifestyle, but it honestly diabetes made me healthier. And it's weird to say that but in a way I think even eating higher carb or anything like that. It makes us more conscious of our life, love our choices and everything. Because before that I was just going through life. And whenever I was in college, I was kind of doing the same thing you were doing. I mean, I'd pick up subway and hey, they had the, the three for five or three for $15 whatever was on Sundays and now like every Sunday I'd be going to subway pick those up. And I'd be eating ramen noodles and macaroni and cheese and you know, we'd have all kinds of things that was the poor foods, I guess, you know, people kind of call them but it was more convenient as we were in college and doing things and even now, my sister in law lives with us and she's 19 my wife talked about it the other day, but she's kind of just eating out convenience eating potato chips, not so much eating meals. It's kind of the way that we did things. I mean something People focus a little more on some of the other extracurricular activities during college and are drinking a little bit more than what they're eating. But still, it wasn't a priority. And we kind of figured that out later in life. And so diabetes just made me healthier in a different way. But you know, it's interesting, something I'm starting to add people don't look at sorry. It's something that people don't look at is some of the positives of diabetes.
Scott Benner 55:24
Right? Well, I'm certainly making no judgments, because I'm not the pillar of health. But I think it's pretty obvious that your body is a machine, and you're feeding it right. And if you don't have anything like type one, then basically you're putting stuff into your machine, some of it's great for your body processes it fine and some of it, it can't, and it does its best to not let you kill it, you know what I mean? Like, that's all your body's doing is it's trying to stay alive as long as it can. And you some decisions you make as the person who put stuff inside of that body, those decisions are great, and some of them aren't. And some of them you don't even realize aren't like little things like different, like processed oils that you really shouldn't be taking in that you're that you take in in food and don't realize how much you're doing. It's you put that in there, it bogs your body down, your body's trying its hardest not to shut off. So it's it's dealing with dealing with it dealing with it, it's the theory eating your body more quickly than it then your body should be deteriorating. And when you get type one diabetes, now all of a sudden, it just becomes more obvious, because there's this one process that your body used to do to try to stop you from dying, that it can't do anymore. And now you're doing it. So you become very hyper aware of it the impact that food has on on your blood sugar. It's just it's the amount of people who end up saying that they think they're healthier because they have type one than they were before. Never, never fails to not shock me but but it never fails to happen is people are like, Oh, you know, now that I'm aware of what's happening, you know, and what I take that as is now that my body's not covering for my, my decisions. And I and I know what they are more frequently. That's it like and don't get me wrong, like I you know, I don't particularly love cereal as a good example. Things that you hear people say a lot like, Oh, I want to learn how to Bolus for cereal. I know how to Bolus Arden for cereal. I've worn a CGM and eaten cereal. And to be honest, my blood sugar didn't go up that far. But that's not the measure of health that my blood sugar didn't go up. That's just the measure of how well my pancreas works. So I hadn't had cereal in a very long time. And I was wearing a CGM around Christmas and I ate it for people. I was like, Alright, here, I'll eat a bunch of cereal. And when I got done, there was a little left in the box. And then the broke part of me like the kid that grew up broke was like, You can't throw that away. Because you paid for it. Which is ridiculous. Because the best thing I could have done for myself was throw it you know, but I was like, oh, it didn't make my blood sugar drop that much. I'll eat it. And I started clearing the things out of the house that I bought to show people while I was eating on a CGM. And I gained like four pounds getting rid of all that stuff like so that people could see my CGM for 10 days in December, I gained like eight pounds. And that's that's no joke. So and don't get me wrong. Like every day, I was like, here, I'm gonna eat a bowl of cereal, which was something that I don't do. And then I was like, Alright, let me get a bag of candy and potato chips and show you what a bag of candy and potato chips do at the same time. The part you didn't hear is that at the end of it, I was like, Oh, I feel terrible. Like I yeah, I felt hard. You know,
Kyle Kondoff 58:31
I actually saw you doing that. It seemed like some people were trying to live vicariously
Scott Benner 58:36
through you like, Hey, you did? There were a number of type ones that were like, can you please eat this for me? Right? Like I ordered a pizza because somebody online asked me to so and, and no lie, the first two slices of pizza my body dealt with. And I was okay. But when I gave it the third slice that my blood sugar got pushed up. And it stayed there for hours after that now, you know, pushed up it was I think in the 160s if I'm remembering correctly, but still higher than my body wanted it to be. Because I could feel it like I got a little tired. I didn't feel so great. You know, like my, you know, my visit to the bathroom. The next day was not as exciting as it could have been. You know, like my body was just not, like ready for all that cheese and the flour and I got a little heartburn from the sauce because I'm old, you know. So there was a lot of interesting things that happen. And don't you think though, that, that that's part of it is when you're being diagnosed, and someone says, here are the things you can't eat anymore. It feels like somebody's stealing something from you, like forget all the actual health benefits for a second, I feel like somebody is taking something from you. So when you're like I think I could figure this out with insulin. I always sort of hope that the people transition this way that they feel like something's being taken from them. They figure out how they can stop that from happening. And to me I think of that as using insulin well but then I Least hope that there's a third act where they go. Alright, well, now that I know how to Bolus for cereal, I'm still not going to eat it as much because I do see the impact it has, and it can't be good for me. I mean, there are just some foods that I mean, it's clear from me watching Arden's blood sugar that your body does not want inside of it. You know, like, that just seems obvious to me. But I don't know. Anyway.
Kyle Kondoff 1:00:22
Yeah, you're exactly what you're saying. Because I think that's all a mindset to is having the knowledge, whether it be a CGM, whether it be poking your finger and everything. But obviously, CGM is much more beneficial because you see it every five minutes, some people don't have that luxury. And that's what's frustrating is the fact that, you know, the, the technology is out there, it's not accessible for everybody. But the knowledge for all that technology is, is not completely out there for the rest of the world for the insurance companies for people like that, because it would be beneficial for like you did for non diabetics to wear this. And I see spouses and other kids and stuff like that on social media, whenever the diabetics or their loved ones, put them on the non diabetics, and they see what it does. Your trial is not the first one. But it's just it's kind of interesting to see the correlation between that. And at the same time, we're thinking about, well, yes, it's genetics. Yes, it's some other stuff. But type two diabetes is further down the road. And we don't want to keep on killing our insulin, making ourselves more insulin resistant over time, and get that type two. So like you said, there's things that our body doesn't want us to eat, that stuff could possibly lead to that in the future. And that's where it comes into play that, you know, whenever non diabetics say, Well, I can't eat that. I mean, yes, you can. Is it going to hurt you in the long run? Nobody knows. We can't tell you. It's kind of unfortunately, it's like what's going on in the country right now? We don't know long term effects of Corona with people. And so it's a wait and see kind of game for these people. And I mean, I don't know, you don't
Scott Benner 1:02:02
want to wake up 15 years from now be growing a horn out of the middle of your forehead is pretty much the point do you don't want something that's not supposed to happen to you to happen to you? Look, I'll be completely honest with you. I haven't been to a fast food restaurant. Since whenever the first time it was that I heard that one of them used some form of silicone in their french fries to keep them something. And I was like, wait, what's that now? And you don't like and I don't remember. I think the company then came out and said, Oh, it's not silicone. It's this. And then when you hear them equivocating about it, you're like, well, I don't think I care if it's actually silicone or derivative of something. How about I don't want to eat that. Like, I won't use nonstick spray on a pan. Like, I just I look at it. I'm like, What is in there? Like, why would I like you know what I mean? Like, it's weird, you'd spray it on a pan would just spray it right in your mouth. No interesting. It's like when you deep fry something, and you start with and don't get me wrong, I just made potato chips recently. They were amazing. But um, you start with five cups of peanut oil. And when you're done, there's three cups of peanut oil in the pan. That means that two cups of the peanut oil is now in the potato chips. So I mean, some of that burned off, but you eat a handful potato chips, you're also eating the oil that it was cooked in. Or you know, and I don't know, there's just something about that. I didn't grow up that way. And it's been a learning process for me. And I don't always win the fight. But I try very hard not to eat something it comes out of a package that's not bagged or boxed or frozen. I just if I'm going to eat something that's not good for me, I'd rather just be ice cream. When I can look at the label and go that's milk and sugar and chocolate. At least it's bad for me and I know what I'm eating it because you don't know what's going to happen later. And I would especially think this sticks in the back of my head sometimes too is you know, there's autoimmune in my family. My daughter has type one. She has hypothyroidism. My wife has hypothyroidism. By the time this comes out, I think I'll be comfortable saying my son was just diagnosed with hashimotos. He's 21 years old and the picture of health. I mean, he is he's a college athlete. And suddenly, recently, he just broke out in hives out of nowhere. And it took a little bit of investigation to find out that he has hashimotos so now he's been on medication for that for I just think that when your body's already, like looking at you going, I wonder what I could get next. Probably don't eat silicone, I guess is my point. I don't know I just try to put yourself on the right side of the fight at the very least give yourself a shot. You know, having said that, I really believe that if you have type one diabetes, any way you want to eat is up to you. I just hope you really understand how to use your insulin because I don't want to see you have that struggle on top of everything else. How do we do today? What do you think?
Kyle Kondoff 1:04:57
I think we did get I think we get by Other good topics.
Scott Benner 1:05:01
I thought we had a nice conversation I really did. I appreciate you doing this, I appreciate you being interested in, in coming on. And if there's anything I missed, now's the time.
Kyle Kondoff 1:05:14
You know, the one thing that I put on social media and it's funny is I tried to be positive about stuff. And lately, it's been a struggle for people to be positive and a lot of things going on. But I kind of mentioned that earlier, look at the positives of diabetes, look at the positive of life. But I always end with this. There's no such thing as a perfect diabetic, I always put up graphs I put on my a onesies, there's good days and bad days. I mean, I'm up there in the two hundreds, maybe three times during that three months, but I'm still down there, low. And there's difficult days, there's good days and bad days for all of us. But there's no such thing as a perfect diabetic. So just don't let anybody judge you on anything that you're doing. And don't focus so much on what everybody else is doing. The only thing we can do is try to beat the person that we were the day before. Well, I agree. And
Scott Benner 1:06:05
I try to remember as well to do the same thing like look, here's the rise Arden had are actually at some point, we've been transitioning Arden onto a birth control pill to try to manage her her periods were coming like really crazy, like she would bleed for like 11 days and then get a five day break and then it would start again. Like it was just insane and it would just keep going on and on it was kid was killing her it was like she was it was like she was just like she was a vampires like buffet line or something like that. It just she couldn't rebound, there was no time to rebound inside. So we tried birth control, the first two months weren't enough of a strength, it was harder for her blood sugar. This is we're in the middle of a third month now with a stronger pill, it's starting to regulate itself. But her blood sugars over the last three months have been incredibly difficult to manage. And so in my world, that means she's going to be more like a six than a five and a half. And that we that she spent more time over 140 than normal, and that there was a lot more insulin used. But it was a fight. And I just always when I'm in the middle of that fight. And I'm trying to imagine how one day I'll talk about on the podcast. I just want people to remember that that stuff like that happens to everyone. But when you come at it with the regular amount of insulin that you always use in every other situation, whether that's because you're leaving a honeymoon or you're having a hormone thing or a growth spurt or whatever, you're gonna lose. If I didn't aggressively go after these last three months. Arden's a once he easily would have been eight and a half. If I would have tried to use the amount of insulin I was using prior to these three months for her. There's no way or a once he wouldn't be a half, but I'll keep it under six. But it's it's with a lot of being flexible and adjusting and things like that. So I hope people remember that.
A huge thank you to one of today's sponsors, g Vogue glucagon, find out more about chivo hypo Penn at GE Vogue glucagon.com Ford slash juice box, you spell that GVOKEGL Uc ag o n.com. forward slash juicebox. I'd also like to thank Kyle for coming on the show and doing such an amazing job. And while we're at it, and we're thanking folks, thanks to the Contour Next One blood glucose meter for being super duper accurate, supporting the show and making just good stuff. Check it out at Contour Next one.com forward slash juicebox.
I do not know how the 1980s radio guys like modulated their voice all the time and talk like this, it seems really difficult. Anyway, thanks so much for listening. And I really appreciate that you appreciate the show that you're listening to it, that you're downloading it that you're subscribing or following in your podcast app that you're telling friends, generally speaking, I really appreciate you. I'll be back soon with another episode of the Juicebox Podcast.
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