#1806 Spokane or Bust - Part 1
After a terrifying DKA diagnosis and life flight to Spokane, Cassie shares how her son’s type 1 began, the pressure to “not try too hard,” and navigating early control, burnout fears, and honeymoon shifts.
Companies that Support Juicebox
Key Takeaways
- Honeymoon Phase Challenges: As the "honeymoon" phase ends and the pancreas produces less insulin, diabetes management often feels like starting over as pump settings and carb ratios need frequent adjustments.
- Medical Professional Perspectives: Sometimes a doctor's pushback on tightly managed blood sugars (like an A1c in the 5s) comes from a desire to prevent caregiver burnout, rather than criticism of the management strategy itself.
- Diabetes is a Marathon: Successful management is about aiming for good outcomes over the long term without tying personal self-worth to every single blood sugar reading. Mistakes and unpredictable days will happen.
- Emergency Preparedness (Life Flight): If you live in an area where critical care requires air transport, an annual air medical transport membership (like Life Flight or Airlift Northwest) can save you thousands of dollars in an emergency.
- Recognizing DKA Symptoms: Excessive thirst, frequent urination, sudden bedwetting, extreme fatigue, paleness, and vomiting are classic signs of undiagnosed Type 1 Diabetes and potential Diabetic Ketoacidosis (DKA).
Resources Mentioned
- US Med: usmed.com/juicebox or call (888) 721-1514
- Eversense 365: eversensecgm.com/juicebox
- Tandem Mobi: tandemdiabetes.com/juicebox
- Juice Cruise 2026: juiceboxpodcast.com/juicecruise
- Touched by Type 1: touchedbytype1.org
- Life Flight Network: lifeflight.org
- Juice Box Podcast Small Sips: Go to juiceboxpodcast.com and click on "Series" in the menu.
- Wrong Way Recording: wrongwayrecording.com
Welcome & Sponsor Messages
Scott Benner Welcome back, friends. You are listening to the Juice Box podcast.
Cassie So my name is Cassie. I am a stay at home mom of three boys. They're 14, 12, and six, and my 12 year old is our type one diabetic.
Scott Benner Have you tried the small sip series? They're curated takeaways from the Juice Box podcast, voted on by listeners as the most helpful insights for managing their diabetes. These bite sized pieces of wisdom cover essential topics like insulin timing, carb management, and balancing highs and lows, making it easier for you to incorporate real life strategies into your daily routine. Dive deep, take a sip, and discover what our community finds most valuable on the journey to better diabetes management. For more information on small sips, go to juiceboxpodcast.com.
Scott Benner Click on the word series in the menu.
Scott Benner If you're looking for community around type one diabetes, check out the Juice Box Podcast private Facebook group. Juice Box Podcast, type one diabetes. But everybody is welcome. Type one, type two, gestational, loved ones, it doesn't matter to me.
Scott Benner If you're impacted by diabetes and you're looking for support, comfort, or community, check out Juice Box podcast, type one diabetes on Facebook. Nothing you hear on the Juice Box podcast should be considered advice, medical or otherwise. Always consult a physician before making any changes to your health care plan.
Scott Benner Today's podcast is sponsored by US Med, usmed.com/juicebox. You can get your diabetes supplies from the same place that we do, and I'm talking about Dexcom, Libre, Omnipod, Tandem, and so much more.
Scott Benner Usmed.com/juicebox or call (888) 721-1514. Today's episode is also sponsored by the Eversense three sixty five. The Eversense three sixty five has exceptional accuracy over one year and is the most accurate CGM in the low range that you can get. Eversensecgm.com/juicebox. The podcast is also sponsored today by Tandem Mobi, the impressively small insulin pump.
Scott Benner Tandem Mobi features Tandem's newest algorithm, Control IQ Plus technology. It's designed for greater discretion, more freedom, and improved time and range. Learn more and get started today at tandemdiabetes.com/juicebox.
Scott Benner I just realized. I'm gonna record this.
Scott Benner We'll introduce you later. Okay?
Cassie Okay. Perfect.
The Creepy Neighbor with the Shears
Scott Benner So they have a row of bush as a hedge, and they I I'm gonna guess that in the time I've lived here, in the twenty five years that I've lived here, they've planted, chopped down, dug up, and replanted this row of hedges, I wanna say conservatively five times. So it's, like, 10 or 20. I don't know. They're not quite arborvitaes. They're nicer than that.
Scott Benner They plant them at about six feet high. They grow up to a certain level. They start to top them. They cap them. Like, they'll they'll cut them to keep them at a at a height.
Scott Benner And then eventually, one day, they just go out there. They cut them down into pieces, throw them away, dig up the stumps, and then replant the same exact bush again.
Cassie Do they just love the process?
Scott Benner I think it's it's gotta be quelling some sort of a mental illness for them. Like, I don't know I don't know
Cassie another way to put it. I that's a selling point though. Mature landscaping.
Scott Benner Well, guess what? It's been four times so far, and it's working on
Cassie it for a time.
Scott Benner It's working on it for a fifth time. So there's a lot of that. There's a lot of of planting, growing, tending to ripping down for no reason, replanting again. There's also and the reason this came up and, by the way, everybody, this is are we gonna say your name, Cassie?
Cassie Yes.
Scott Benner This is Cassie. We'll get to who she is in a second. She and I were talking before we started. But the reason I bring it up is because the older person that lives at the house and as I described to Cassie before I hit record, she has to be a 150 years old because I'm sure she was a 100 years old when I moved in here twenty five years ago. So, I mean, bent over, can't stand up straight anymore, doesn't look like she should be mobile, but still spends her entire summer on her hands and knees or bent at her waist, like folds herself in half to bend to the ground.
Scott Benner I mean, I'm impressed by her flexibility every day in my life with a pair of steel kitchen shears in her hand.
Cassie Oh my goodness.
Scott Benner Grabbing leaves, weeds, anything she doesn't like one at a time and snipping them off.
Cassie She must also do yoga.
Scott Benner I mean or her back is broken and it just doesn't matter because I'm not lying.
Cassie Could be.
Scott Benner Standing up straight, bent at the waist, hands on the ground. Clip, clip, clip, clip, clip. And then the the creepiest part and then you'll introduce yourself. The creepiest part is that there are times in the middle of the summer, sometimes as late at 03:00 in the morning where it's just dead silent outside and you have the windows open and you hear this.
Cassie Oh my goodness. Stop. She's out there at 03:00 in the morning?
Scott Benner Clipping with the Sears. And I have to tell you, I don't make fun of mental illness. I think it's terrible, and I don't know what's wrong. I have had situations where I've been face to face with her and she's been like, hello. How are you?
Scott Benner And I'm like, good. How are you? Do you not remember when you screamed and yelled at me six weeks ago? And then there's times where just for no reason, you'll just be pulling out of your driveway. I haven't seen her or laid eyes on her in months and, you know, you get to the end of the driveway.
Scott Benner Nice day. The windows are down. You put your hand up to wave and she just say, you fucking asshole. And I'm like, oh my god. What is happening?
Cassie Oh, dear.
Scott Benner Whoever buys this house, I imagine we'll have a landscaper come in and cut down, I'm guessing, 65 to 70% of what's planted on it because they they literally, it's like a walking garden. There's no actual space to be on
Cassie that. Oh, I see.
Scott Benner It's really crazy.
Cassie Is that where is that where the deer should go to die?
Scott Benner I mean, listen. If Snow White was over there right now having a full on relationship with seven smaller men, I wouldn't be surprised. It's a jungle forest across now here's the high side. I can't see their house. Like, I'm not kidding.
Cassie That's how much landscaping there is.
Scott Benner I am not kidding. I can stand at my front door, look across the street from my house, and I if I didn't know there was a house there, I wouldn't be able to prove it.
Cassie Oh, dear.
Scott Benner Yeah. Wow. Clink. Clink. The first time it happened, the kids were like, yo.
Scott Benner We're gonna die. There's a murderer outside. Hey. There is a guy with a hook outside. He's sharpening the hook.
Scott Benner He's coming for us. And then it took us a while to figure it out, but no kidding. It's her. And I'm not telling you this happens one time. Like, this happens.
Cassie Consistently. Yeah.
Scott Benner Yep. Yep. And then, you know, and and to your point earlier, which we won't say out loud because it had something to do with somebody you're related to. Her property don't look any different than mine does. Like like, it doesn't get any better or any worse or any different.
Cassie Right. Yeah. Yeah.
Scott Benner Yeah. It's awesome.
Meet Cassie: Navigating the Honeymoon Phase
Scott Benner Anyway, Cassie, do you have type one or does your kid have it? What's
Cassie going on? My kid has it. Yeah.
Scott Benner Awesome for you. Let's see. Let's let's learn about you for a second. Just introduce yourself just briefly.
Cassie So my name is Cassie. I am a stay at home mom of three boys. They're 14, 12, and six, and my 12 year old is our type one diabetic.
Scott Benner How long ago was he diagnosed?
Cassie He was diagnosed in July '24, so about eighteen months now.
Scott Benner Oh, it hasn't been that long at all.
Cassie No. It it feels like forever, but also not.
Scott Benner Tell me about that. What do you mean it feels like forever?
Cassie I just feel like we've settled into it enough that it just feels normal.
Scott Benner Okay.
Cassie It's almost like we don't really remember him not having it.
Scott Benner Wow.
Cassie Yeah. Which I find interesting. I don't know. I guess I just feel like I don't remember how easy it was before we had to do all the extra stuff. But then at the same time, it still does feel very new.
Cassie He's, like, in a prolonged honeymoon at this point, and so we're just now finally seeing it start to die off. It almost feels like we're learning all over again.
Scott Benner The honeymoon's dying off.
Cassie Yes.
Scott Benner Okay.
Cassie Yeah. Yep. Alright. So we'll have days where it is very obviously on the pancreas is helping, and then you go into, like, three or four days where it is not. And, like, ratios are not working.
Cassie Pump settings are not working. So this last several weeks, I feel like for us, it's just been starting over again. So
Scott Benner Is that feeling difficult, or are you able to adjust with it?
Cassie We're adjusting. It was a little difficult at first only because we've kept such good control. We managed to get his a one c down so far right off the bat.
Scott Benner Mhmm.
Cassie And that's kind of where my email came from was because I was basically told you're trying too hard. Like, you don't need to try this hard. And I was like, I don't know why you wouldn't want me to. Like, he's doing really well, and he's happy. So it was a little frustrating because it's just like, you don't wanna lose the progress, I guess.
Scott Benner Pick through that for a second though. Who told you you were trying too hard?
Cassie That was our endo.
Scott Benner Your endo.
Cassie And he's wonderful. We love him so much. I am so thankful to be in the practice that we're in. He's really great. I And think he was just kind of looking at it from a mental health standpoint, honestly.
Cassie Like, he didn't wanna see us burn out so quickly.
Scott Benner Were you going cuckoo?
Cassie I didn't feel like I was.
Scott Benner Do you think he thought you were?
Cassie Probably.
Scott Benner Is it because you spoke very quickly and your hair didn't look combed, or what was the level of concern do you think?
Cassie Well so I think the level of concern was coming in with so many questions and ideas. So several times I was told, you're kind of getting into the weeds there. You're getting a little bit out there.
Scott Benner What's the weeds? Give me an example of, like, a bridge too far for the endo.
Cassie Oh, gosh. At the time, we were kind of just looking at a one c in general. Like, I use your little calculator on your website a lot.
Scott Benner Yeah.
Cassie That's always on for us, by the way. If I check his ninety day average before we go in to the endo, his a one c always comes back exactly what the calculator says it's going to be.
Scott Benner You know, a a listener made that for me years ago.
Cassie It's awesome. Yeah. No. It's great. Gosh.
Cassie I wish I could remember what it was. I remember what office we were sitting in. So where we live, we actually travel three hours to go see our endo.
Scott Benner Oh my gosh.
Cassie Yeah. So they'll come down and do satellite clinics here.
Scott Benner Off a mountain? What do you mean come down?
Cassie Come down from the Northern Part of Washington. So I'm in Eastern Washington
Scott Benner Okay.
Cassie But Southeast Washington. So we're a pretty big community out here. It's called the Tri Cities. We have to go up to Spokane to go see our endo. So our hospital network, all of the endos here, they don't have them here anymore.
Cassie We had one that was about an hour and a half away. They didn't pay him enough, and the practice was overloaded. He was the only one. This is what I was told anyway. And so he ended up leaving.
Cassie So now everybody they told me that there are, like, 600 families down here that travel up to Spokane for care.
Scott Benner Jeez.
Cassie Yeah. It's crazy.
Scott Benner And so it's six hours round trip?
Cassie Yes.
Scott Benner It's a whole day.
Cassie It's a whole day. Yeah. It turns into a whole day. And if we do have to go up there, that's exactly what it is. We usually schedule the appointments earlier.
Cassie Him and I leave first thing in the morning. We get up there for the appointment, and then we basically just get back in the car and drive straight home.
Scott Benner But this appointment's so amazing it's worth it, or it's just the only game in town?
Cassie It's the only game in town unless I wanna go to Seattle, which is longer.
Scott Benner Okay.
Cassie Yeah. Yep. But I do think it is worth it. I also think it's worth it. And like I said, they do satellite clinics down here, so there are times that we can get in with the satellite clinic.
Cassie So they've got a little office space that they rent out. Like, two of the endos from the practice will come down and see people here.
Scott Benner Okay.
Cassie That's an option as well. Our last one was over Zoom because they had just seen him in the office. So they are pretty flexible with
Scott Benner us. Mhmm.
Cassie But I do remember sitting in the satellite clinic and him telling me, you're really getting into the weeds here. I feel like you're in the forest, and you're just really focused on this one tree.
Scott Benner You said, dude, we're in Spokane. Of course, we're in the forest. Calm down.
Cassie Yeah.
Scott Benner Yeah. What did you think? Did you think you were? Like, when he said that, were you like, no. I'm not.
Cassie No. That's exactly what I thought. I was like, no. I'm not. How is that possible?
Cassie And I think what happened was so he had been diagnosed in July, and then I think his a one c was, like, 12. And then we saw them again. Obviously, we had education that we had to do, so we traveled up there several times. We saw them again in October, and I think it was down to, like, 6.4.
Scott Benner Okay.
Cassie And then December, we saw them in the satellite clinic, and his a one c came back at 5.4.
Scott Benner Okay.
Cassie And I cried.
Scott Benner You're like, I did it. I did the thing. It happened.
Cassie I did it. I did the thing. I did the thing. Right? Yeah.
Cassie So he he wanted to talk about burnout, and I think you're trying too hard, and it's really not that serious. He is still healthy. You guys are doing a good job. Right?
Taking Management Personally vs Realistically
Scott Benner He didn't say congratulations. Well done. How did you accomplish this? No. And why are you saying he's a good doctor?
Scott Benner I don't understand. Are you Catholic? No. No? Because I I I just find sometimes Catholics like to say everybody's great before they say something bad about them.
Cassie No. He is really good.
Scott Benner But what makes him good? I'm gonna dig into this. What makes him good if when you, on your own, figured out how to get an a one c in the fives, he said, don't do that.
Cassie And I don't think it was that he didn't want us to do it. I think he just felt like we were trying too hard too fast.
Scott Benner Well, I don't know what that means either.
Cassie I know. I know.
Scott Benner Like, do you feel overwhelmed by it?
Cassie I don't. I mean, I think there were times where I did a little bit.
Scott Benner Yeah.
Cassie I would take it very personally. So
Scott Benner Okay. We're getting to it.
Cassie If, like, if I didn't nail something and his blood sugar was too high for too long, I would take it very personally, like I had failed.
Scott Benner How personally? Like, did you lash yourself in front of people?
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Scott Benner Did you lash yourself in front of people? Or
Cassie No. No? No. But I would just I would be so upset. They would just put me into a spiral
Scott Benner Okay.
Cassie And then it was just, like, bad mood central. And my husband's like, it's
Scott Benner Oh, you're married?
Cassie Yeah. I am married. Yeah. Yeah.
Scott Benner Has he ever said, why don't you calm down, Cassie?
Cassie Well, no. I mean, not in that way. But he has said, this isn't about you. You didn't mess up. You're doing the best that you can. Like, you have the information.
Cassie It just didn't work this time.
Scott Benner Okay.
Cassie It's not perfect every time. Like, diabetes isn't predictable in most senses, and so it's not like, just because it your pizza bolus worked this time doesn't mean it's gonna work next time.
Scott Benner I think it will.
Cassie But we have had that experience.
Scott Benner No. No. Of course. Of course.
Cassie Yeah. Like, where it has and then where it hasn't. But there are lots of things that we have figured out that we just nail every time, you know.
Scott Benner Yeah. Yeah. I am supremely aware of the idea that there's a difference between saying, like, this is how it could work. And if you understand these things, it probably will work this way most of the time, which is about what I believe about diabetes. Right?
Scott Benner And the feeling that some people take away from it that tells them that if I don't do it that way and it doesn't work every time that I'm failing, like, I don't have that feeling. So when I share with somebody, hey. You should give this a shot. I think if you understood this better, if you had your basil right, you know, maybe if you understood the fat impacts of this meal, maybe this would turn out better for you. I don't expect it when I'm saying that it's being heard by somebody who hears, and if it doesn't work out, you're an abject failure.
Scott Benner But at the same time, I don't know another way to relate the idea. If you and I were standing at a at the precipice of a cliff and I said, Cassie, listen. There's no other options here. We are gonna have to try to jump over the cliff here. And I said, do you run as hard as you can and jump as late as possible without falling because if not, you are gonna fall and hit your head and it's not gonna be pleasant.
Scott Benner If that was the truth, I don't think you'd want me to explain it to you by saying just give it your best shot and if you fall, it's okay.
Cassie Right.
Scott Benner At the same time, telling somebody that if you don't do this right, you might splat. Some people don't intersect well with that pressure. Mhmm. I don't know who's who and I certainly can't I don't wanna give like a milk toast presentation, but at the same time, I'm like I'm counting on all of you to be adults and go like, okay. I didn't get it the first time, but I could try again without beating yourselves up.
Scott Benner So I'm in a bad position is what I'm saying. And I'm wondering how you heard it. That's my question. Like, what did you hear coming from me and did that lead to you feeling like you failed or no?
Cassie No. I wouldn't say so.
Scott Benner Okay. Good. I don't want that. I don't want anybody to feel that way. I just know sometimes people do.
Cassie Yeah. No. No. If anything, like, I was telling my husband, he's at work. And so I had texted him.
Cassie I'm like, hey. The recording time got moved, so don't text me during that hour.
Scott Benner I'll be talking to Scott.
Cassie Right. I'm like, don't text me during that hour.
Scott Benner If you cut your hand off at work, hold your thought. Okay?
Cassie And he's like, hope you're not nervous. It's gonna be fine. And I was like, well, if anything, I just feel more emotional about it. And it's just because the podcast has helped so much.
Scott Benner About talking to me today?
Cassie Yeah. Oh. Yeah. Oh. And so just I think it was just kind of reviewing, like, where we've been, right, since diagnosis.
Cassie Sure. Sure. So and the things that we've accomplished. But, no, like, you asking that question, I always feel like you're speaking directly to us or any of the guests, like anybody that I've listened to. You know?
Cassie And so it's really nice because I've never felt you give information, but you'll be a failure if you don't make it. Like, I've never felt that way. Like, I've never gotten that.
Scott Benner Yeah. I I definitely see diabetes as a marathon, not a sprint.
Cassie Right. Right.
Scott Benner At the same time, I think that giving expectations there's nothing wrong with expectations. There's nothing wrong with being aspirational, but you also have to understand that it very well may be a process. And that process may go longer or shorter for some people. I've had people tell me directly, I listen to the pro tip series and a month later, my a one c was no success. Like, it just all made sense to me.
Scott Benner And I've had somebody tell me that I listened to the Pro Tip series, and I didn't pull together for two years after that. But once I did, I realized, oh, I got that information there.
Cassie Right.
Scott Benner And who cares? I mean I mean, I realized you want it to be faster, but as long as you get there, I don't think it matters what path you take.
Cassie Yeah. Yeah. Yeah. No. And that's nice to hear.
Cassie For me, I am an instant gratification kind of person. And so if we have a problem, then I wanna figure it out and just do it right every time.
Scott Benner Yeah. We'll keep you out of the casino.
Cassie Right.
Scott Benner So you don't get all caught up in that, the slot machines there.
Cassie Yeah. Yep.
The Lead-up to DKA
Scott Benner I'm sorry. So he let's find out how he's diagnosed. What was, led up to that, and was there any reason for you to think it might I have always disliked ordering diabetes supplies. I'm guessing you have as well. It hasn't been a problem for us for the last few years, though, because we began using US Med.
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Cassie No. So we didn't even really know what type one diabetes was. I feel like that's a a lot of people.
Scott Benner Well, you live in the woods.
Cassie Yeah. And I didn't like, we didn't even know anybody that had a type one kid.
Scott Benner Mhmm.
Cassie I didn't even know that we had them at our school, and there were, like, five.
Scott Benner We had them. I like the way you said that.
Cassie We didn't even know we had them.
Scott Benner The place was littered with them, Scott, and I didn't even know it.
Cassie They were everywhere. No. So he was when was this? The end of his fourth grade year? And looking back now, we can see symptoms starting like that last week of school.
Cassie Mhmm. And I remember him saying to me, can you please remember to fill my water bottle today? I have been so thirsty, and I hate having to go inside to fill it because he was outside in a portable. So he'd have to get a pass, and then he'd to walk to the main building Mhmm. Fill his bottle, come back out.
Cassie And I'm like, oh, yeah. Absolutely. I had no idea how much water he was drinking at school. So that was, like, the June. Over the next couple of weeks, he was starting to look thinner.
Cassie He was really pale. He was using the bathroom more often, drinking tons of water. Mhmm. And so, like, the week right before he went into DKA, I remember him waking me up like he'd gotten in our freezer, and he was getting out ice in the middle of the night. And I was like, I don't understand what is going on with this kid.
Cassie Why does he need ice? It's not even that hot yet, But he just was so thirsty.
Scott Benner Yeah.
Cassie And so he had finally wet the bed, and he was so embarrassed. Yeah. And I was like, well, bud, I don't know. He goes, mom, I just don't feel right. He had fallen asleep, like, middle of the day, just sitting up in his chair.
Cassie He'd fallen asleep. Mhmm. And he's like, I just don't feel right. I'm not sure what's wrong with me. And he's like, and the bedwetting is weird.
Cassie And I was like, yeah. For sure, bud. I mean, I don't know.
Scott Benner Yeah. We're all in line with that one, brother.
Cassie Yeah. For sure. Like, at ten, that's weird. I And was like, well, if it continues, I'm gonna have to take you to the doctor. We're gonna have to figure something out.
Cassie And he goes, no. I'd really like it if you'd make me a doctor's appointment. Can we go on Monday?
Scott Benner Oh, wow.
Cassie Yeah. And I was like, sure. Yeah. We can go on Monday. That's fine.
Cassie And this was probably Thursday.
Scott Benner Yeah. So you were like, let's see if we need to go to the doctor. And he was like, no. We should go to the doctor. Yeah.
Scott Benner I'm in trouble. He knew he was in trouble.
Cassie Yeah. Which is interesting because he doesn't want to go there. Right? And so I just thought it was interesting he was so agreeable. And I'm like, okay.
Cassie But yeah. No. We can do that. And I said, well, we don't have a pediatrician right now, but I can take him to urgent care or something. And he's like, okay.
Cassie We just kinda let it play out. And, again, the next day, he was feeling worse. We decided we were going to travel to another town to go to a little museum. They were doing a World War two reenactment thing. Our oldest is way into that stuff.
Cassie And so we were gonna go. He was really nauseous. And so he's, like, in the bathroom dry eating, but also his stomach is super upset. So he doesn't know if he needs to go to the bathroom just chugging water. And so I was going to stay home, and my husband was gonna take the other two boys.
Cassie And he's like, no. I don't wanna miss out on the family day. I'm just gonna push through it. So we slept on the hour car ride in the car. We drug him all over at this museum.
Cassie It was outdoors. It was, like, 90 degrees. And he's begging for water. I forgot to bring my water cup in. And I remember being so irritated with him.
Cassie I'm like, I don't understand what your problem is. Like, now we're gonna have to go all the way back out to the car. It's this long walk. And the poor kid, like, looking back at pictures, he's just suffering.
Scott Benner Yeah.
Cassie You know, you just feel terrible. We go to a restaurant to eat after that. He orders food he can't eat, but he chugged three Cokes Mhmm. And then fell asleep in the booth.
Scott Benner In the booth? Yes. I got a little sleepy recording the podcast the other day. Don't tell anybody. My iron's a little low.
Scott Benner And I had to sit up straight. I was talking to somebody. She was really great. And I I hope nobody hears it, like, thinks they know where it is.
Cassie You're, like, nodding off.
Scott Benner My farting's, like, back down to seven. I'll talk about another episode. She's talking. I think her voice was just very relaxing.
Cassie Oh, yeah. And I
Scott Benner was like, I got way ahead of that. I was like, oh. I just sat straight up, like, my hands on the desk. Was like, stay here. But to fall asleep in the booth at a restaurant?
Cassie Yeah.
Scott Benner Yeah. I mean, when that happened, do you look at the do you bring the boy with you to the day out, the husband? Was he there?
Cassie Oh, yeah. He was there.
Scott Benner You look at him and go, hey. This one's dying.
Cassie Yeah. We're like, oh, man. It was crazy. And so then the next day, it's Sunday, he just, like, napped on and off all day. We go to grandma's for dinner, and then the vomiting starts.
Scott Benner Okay.
Cassie He doesn't wanna eat dinner. He doesn't have an appetite. He's laying on the sofa, and then he pukes on our floor. And I'm like
Scott Benner Thanks for having us over.
Cassie Awesome. Sorry, grandma. Yeah. So she's like, oh my gosh. You poor thing.
Cassie I'm so sorry. And so it just was fluids. Well, it just continued, like, hourly. So I had been up with him all night long. I left our bedroom door open, so he was on the couch.
Cassie He'd call for me if he needed help or whatever. And so I'm out there rubbing his back. So finally, at, like, 08:30, I get out of bed. I was so tired. And he's like, mom, I just feel really bad.
Cassie I need you. And I was like, okay. So I get up. I go out there, and I could see his spine through his pajamas.
Scott Benner Oh my gosh.
Cassie And I was like, okay. And he's already really small as it is. He's in, like, the twelfth percentile. So he's very short, very thin, which all of those things he hates. And so it was just very obvious he was ill.
Cassie So I called my husband out, and I'm like, hey. I need you to come look at him and tell me what you think. Mhmm. He was so pale. His cheeks were almost like this mottled purple.
Cassie Yeah. He just did not look right. And so my husband comes out and he goes, oh my god. We have to take him to the hospital right now. There is something seriously wrong.
Scott Benner Right.
Cassie And I was like, what? And he's like, you have to get clothes on. We need to go now.
Scott Benner What's your husband do for a living?
Cassie He's a police officer.
Scott Benner Okay. And, and you are stay at home, but did you go to school or have any background or anything prior to that?
Cassie Prior. I didn't go to school. I went straight into dispatching, 911 dispatching. That's how we met.
Scott Benner Oh, okay.
Cassie Yeah. So I did that for ten years. And then after we had the first two, then I stayed home. So
Scott Benner He's not the only person who's ever been on the podcast to say that.
Cassie Oh, really?
Scott Benner I was a dispatcher, and I met a cop that way.
Cassie Oh, yeah. I mean, I yeah.
Scott Benner Is that, like, Tinder for cops? The 911?
Cassie I I don't know. I don't know. They would come in on their lunch breaks. We were in a really small community, so there weren't a lot of them on. So there'd be, two dispatchers and then,
Scott Benner like Yeah.
Cassie Two from his agency and then two from another agency.
Scott Benner You're getting to a certain age. His eyes are both pointing in the same direction. Seems like a good bet, that kind of thing.
Cassie I was 24. He's older. He was 31.
Scott Benner Oh.
Cassie Yeah. So, no, we would just like, everybody would kinda have lunch together.
Scott Benner Right.
Cassie And then eventually, he just was like, hey. Do you wanna go?
Scott Benner Hey. Would you like it if I ruined your life? Would you like me to ruin your life? Right.
Cassie And I was like I think I can.
Scott Benner It comes with a house. What do you think? Yeah. I was like,
Cassie yeah. Let's do that. And now here we are eighteen years later.
Scott Benner That's crazy. How'd you like me to give you three kids and something to clean?
Cassie Yeah. Exactly.
Scott Benner You're gonna love it.
Cassie And I'm not very good at it, Scott.
Scott Benner Yeah. I'm not very good at it.
Cassie The house cleaning. I'm just the worst housekeeper.
Scott Benner Sucker. Yeah.
Cassie Yeah. Exactly. Thanks for the kids. Sorry about the dirty house.
Scott Benner Yeah. There were better options. I I just I didn't wanna say it at the time.
The Diagnosis Unfolds
Scott Benner So you go off to the hospital right then and there. Is that Friday? Because you said Thursday, went to the museum. Was that Friday the or is that Sunday?
Cassie So, like, Thursday was when he told me he wanted to go to the doctor.
Scott Benner Okay.
Cassie This is now Monday morning.
Scott Benner How come you didn't go to the doctor Monday? You promised him Monday.
Cassie We did to the ER.
Scott Benner Did you have an appointment at the doctor later in that day?
Cassie No. We didn't. I was just gonna take him into urgent care.
Scott Benner Oh. That's Oh, right. You don't have a pedi
Cassie We don't have a pediatrician. We still don't. And that's a whole Wait.
Scott Benner Why do you not have a pedi
Cassie The area that we live in, that's a whole another story. I mean, it's just so hard to even find one.
Scott Benner Cassie, clean the house and get the kids a pediatrician. Okay?
Cassie Yeah. Exactly. I know. Yeah. So he wraps them up in a blanket.
Scott Benner Right.
Cassie And we basically go down there in, you know, sweatpants. Right? The ER is, like, six blocks from us. It's super close. So I go in first because he's gonna carry them inside.
Cassie At this point, here's the really weird thing, and I don't we see this differently. My husband's father is remarried. He has a granddaughter from that wife who has type one. So we no blood relation at all whatsoever.
Scott Benner Yeah. I got it.
Cassie She'd only been diagnosed about eighteen months at this time.
Scott Benner Okay.
Cassie We had literally just discussed type one diabetes at dinner at grandma's house on Sunday, just the day before. Right? So he is great at listening. My son is. He's great at listening.
Cassie So I'm sure he was eavesdropping on the conversation. And we're like, wow. That's so crazy. Like, we've never met a child with type one diabetes. I bet that's so hard.
Cassie Like, I don't even know what that looks like. So as we're taking him out to the car to go to the hospital, My husband's like, okay, bud. We you know, something's wrong. We're gonna take you. I swear, he asked, do I have diabetes?
Cassie Oh. My husband's like, no. I think he said, do I have a serious disease? And I'm like, well, I don't know. It could be one or the other.
Cassie I heard diabetes. And I was like, no, bud. Of course, you don't have diabetes. No. That's not even a thing.
Cassie Like, they're gonna take care of you. Mhmm. So we get down to the ER. I go in first, and I let them know this is what he's here for. She gets up from the desk and, like, runs into triage and grabs the nurse and says, this little boy is coming in.
Cassie You need to come see him right now. And I'm like, oh my god. What is happening?
Scott Benner That's the lady at the desk, by the way. She's might maybe not even a nurse. Right?
Cassie Right.
Scott Benner Yeah.
Cassie Yeah. Yes. And so she comes out, and she's like, just come right in here, and she brings us straight into triage. My husband sits him in a chair. At this point, he can't keep his eyes open.
Cassie His head's rolled over to the side. She wants to get height and weight, and I'm like, this is gonna be impossible. We can't even get him to stand up. And she goes, okay. Listen.
Cassie I'm not diagnosing him, but I've worked in pedagogists long enough to know that this is new onset type one diabetes. So just be prepared. And I was like, I literally just told him he didn't have diabetes.
Scott Benner It was ten minutes ago. I am also not great at keeping the house. Like, let's not pile these things up right now. Okay? I think people are looking at me.
Cassie I don't even know what this means. I know. It was so crazy. It was so crazy.
Scott Benner I thought you were gonna say you thought you jinxed him by talking about it the week before.
Cassie Yeah. I
Scott Benner Because I'm not superstitious. Well, you wanna know something? I've never said this in the podcast before. I am not superstitious. My wife, I don't think is either.
Scott Benner Although, I think she might believe in ghosts. So it's who knows? But Arden's diagnosed in August, couple weeks in August. And for our anniversary, which is the August, Kelly and I went to like a nice restaurant, a place we had never been before. A place where they call the food stuff that you don't really know what it means, you know?
Cassie Sure.
Scott Benner So we ordered a few appetizers and we ordered something called sweet bread. I think thinking it was bread, but it's not. Do you know what sweet bread is?
Cassie I don't.
Scott Benner It's pancreas. What? Yeah. And there was, like, a half a minute where I was like, did we, like, put bad mojo out into the world or something? Like, we steal the pancreas from an animal and then nature came and stole one from us?
Scott Benner Like, do you know what I mean? Yeah. So Yeah. I don't really think that, but I'm not gonna lie to you. There was, like, a half a second where I was like, oh, I don't like the optics of this.
Cassie Yeah.
Scott Benner Yeah. So, anyway, you don't know sweet bread?
Cassie No.
Scott Benner Yeah. It's what it is. How to prepare and cook sweet bread preparations.
Cassie Craziest thing I've done is, like, beef tongue or bone marrow. That's about it.
Scott Benner Oh, I'm with you on that's weird. Sweet bread meat from the thymus and pancreas of cattle is prepared with this easy recipe for tender and tasty nuggets coated in flour then fried. That's allrecipes.com in case you wanna go check it Oh. So when you started talking about that, I was like, I wonder if they think they, like, brought it into existence by talking about it. Thank God you don't think that.
Scott Benner Okay. Alright.
Cassie No. Not at all.
Scott Benner They clearly saved the kid. That's nice. What was his a one c? What was his blood sugar? Do you know?
Cassie I wish I knew what his blood sugar was when we got there. I don't think they ever told us. If they did, I didn't comprehend it. His a one c was 12, though.
Scott Benner Oh, wow.
Cassie Yeah. It was 12. Yeah. So they got him back there, and he basically just went to sleep. And then that was probably, oh gosh, I don't know, sometime in the morning.
Cassie Yeah. He didn't really wake up again until, like, 03:00 in the morning, like, 3AM that
Scott Benner night. DK, obviously?
Cassie DK. Yeah. Yeah. Yeah. So he was in DK.
Cassie They called our local hospital that has, like, a small PICU. Mhmm. They asked him, well, do you want him? And they were like, no. Wait.
Cassie We have an endocrinologist on staff. We don't want him. You need to send him away. So they told us to choose Seattle or Spokane. We went to Spokane.
Scott Benner Up the mountain. That's right.
Cassie Up the mountain. Yeah. And so but they life flighted him up there.
Scott Benner Wow.
Life Flight and Hospital Experience
Cassie And I think part of why I didn't some of that information I didn't get was because a nurse had come in. So because of my husband's job, he knows the ER doctors and nurses. So they knew him when we came in. So they were very generous with us with information. So they were like, hey.
Cassie He's gotta fly. And if you don't have life flight insurance, get it now, or it's going to be very expensive. Oh. He just needs to have it before the time of the flight. So I was immediately on the phone getting Life Flight insurance.
Cassie It's, like, $65.
Scott Benner Does the insurance company go, wait. Why? Why do you want why do you want it right now? I know. Yeah.
Cassie And it you just get it through them. So what happens is if you buy the insurance membership through Life Flight, then they bill your insurance. Your insurance pays their portion, and then they just write off the rest of the bill.
Scott Benner The whole world's a scam, Cassie. I
Cassie just I know.
Scott Benner I just wanna say that.
Cassie But guess what? Yeah. It saved us a lot of money. I would have $10. The whole bill was, like, 65.
Scott Benner Oh, is that a thing you think that's not just a Washington thing. Right? Like, you should be able to, like boy, I I that's hard to preplan for, but that's not a bad thing to have in that situation.
Cassie No. It's not. And I think the membership's gone up to 85. It's like an annual thing that you pay, and then you just put your whole family on it. So anybody who lives in your household can be on your Life Flight membership.
Cassie I think it's a great thing to have. A lot of people I didn't realize how many people actually had it.
Scott Benner AIRMED care? Is that what it's called? Network? Global
Cassie Well, it just it depends because, like, we have both in the state, we have both Life Flight and we have Airlift Northwest. So ours is through Airlift Northwest.
Scott Benner Okay.
Cassie Yeah. So it just depends on the the provider. So you would have to kinda check into, like, if you were gonna look into that.
Scott Benner Oh, there's a number of them. Yeah. There's a number of them. Life Flight Network, lifeflight.org. Mhmm.
Scott Benner I'm just gonna go to lifeflight.org just so I can have it. Air Medical, $85, annual membership from Lifeflight. FireMed Ground, annual membership from FireMed Ground. Air plus FireMed Ground. This is, like, less than $200 for all this.
Scott Benner Mhmm. And there is something about Oregon here. Oregon Air Transport, Montana, Washington, Idaho, Hawaii. This is probably a bigger deal in places where stuff's more spread out, I guess.
Cassie Right. Yeah. Exactly.
Scott Benner Because you can fall out my front door and go to four
Cassie hospitals. Hospitals. Right. Right.
Scott Benner Yeah. Yeah.
Cassie Yeah. Yeah. We've got them here. I mean, our community is pretty big. Yeah. It's really weird.
Cassie Like, we're the size of a big city, but it's just a gigantic small town. Mhmm. So we just don't have a lot of the amenities that some of the other areas have.
Scott Benner What?
Cassie Yeah. So he was flown up there. I was supposed to be able to go with him. So I ran home to pack a bag because, like I said, we're only six blocks away. And then when I get back, then my husband breaks it to me.
Cassie Oh, yeah. You don't get to fly with him. You have to drive up behind him. Yeah. Because they have a training nurse on, and the training nurse is in your seat.
Cassie And I was like, that's rude.
Scott Benner It's okay. We'll meet you there. Did you and your husband drive together?
Cassie No. So he stayed here with the other two boys, and I went up. And so I think he landed up there around two in the afternoon. I was up there by thirty, 06:00 because I ended up coming home and showering. I was like, well, at least I I can at least do that for myself.
Cassie I'll shower.
Scott Benner Did you think he was in, like, mortal danger, or did you not have that feeling?
Cassie No. I didn't. We thought he had a stomach bug.
Scott Benner Wait. Even when they're life flighting him and they're telling you diabetes, you're not believing it? Or did you mean you thought he had a stomach bug prior to going to the hospital?
Cassie I guess I thought we thought he had a stomach bug going to the hospital.
Scott Benner Okay.
Cassie I didn't think he was in mortal danger, but I didn't I guess I just didn't understand what it was. Mhmm. So then he's up there, and he's he's in the PICU. And, thankfully, he was only there overnight. I mean, a lot of kids stay a lot longer than him.
Cassie He recovered very quickly.
Scott Benner That's good.
Cassie So he was admitted Monday. He was released Tuesday. They allowed us to go home Tuesday evening.
Scott Benner Okay. Did they fly him back or you drive?
Cassie No. We drove back.
Scott Benner Okay. Yeah. Did you shave your legs in the shower?
Cassie I did not.
Scott Benner Good. I think that's fine though. I think if you told me you shaved your legs, I'd be like, this lady wasn't really grasping the situation.
Cassie Nope. Nope. I sure did not. Okay. I did not.
Scott Benner I'm okay with that then, I guess.
Cassie Yep. No. I just went home and then I just changed into clean clothes. But then, course, by the time I got to the hospital, like, I was so sweaty anyway. I'm like, it doesn't even matter.
Scott Benner What's the point of all this?
Cassie What was the point of that anyway?
Scott Benner Do you have that feeling like I should prep myself before I go to the hospital? The shower weirds me out a little bit, Cassie. That's why I'm asking.
Cassie No. I just like, I had it was like the stress sweat thing. So I felt like I'd already slept overnight. Yeah. I was in pajamas, essentially.
Cassie I felt so gross. I'm like, nobody's gonna want to sit next to this person in a hospital room. Mhmm. Like, I need to at least be kind.
Scott Benner Being polite. Yeah. Yeah.
Cassie Yeah. And, like, just at least clean my body before I go. No. That's that's that was it. That was I just did not wanna smell sweaty.
Scott Benner My father-in-law has passed on now, but I'll tell this story real quickly. He he had a heart attack. I think it's the only heart attack he ever had, but he had a heart attack. He's having a heart attack. His fingers were going numb from the heart attack.
Scott Benner Like, he put Neosporin on his fingers. That was what he did there. And then when he realized he probably had to go to the hospital, he would not let my mother-in-law take him to the hospital before he showered because Oh, no. He doesn't leave the house without showering.
Cassie I see.
Scott Benner So I didn't know if it was that level of crazy or if it was something. No. Okay. You were just dirty. I gotcha.
Scott Benner Okay. And
Cassie really, I mean, I was looking at it as, well, he's already without me. So taking an extra ten minutes really isn't going to make that big of a difference.
Scott Benner Plus you have two other kids if something happens to them.
Cassie Yeah. And and, of course, they didn't grasp the situation either. So it's like as soon as I walk back in the door
Scott Benner It all resets for them a little bit. Right? They're like, you're back.
Cassie Yeah. And they just don't get it. And they're like, well, where is he? And I'm like, well, you know, he's left. And, of course, the helicopter flies right over our house as it leaves.
Scott Benner Really? Oh, you said it was close. That's right. Yeah.
Cassie Yeah. So their flight path is right over the top of the house. So we see them come and go. Sometimes it's, like, five times a day, and sometimes it's not. And so, like, I had texted our oldest.
Cassie I'm like, hey. Your brother's helicopter's leaving if you wanna look. Right? But then, of course, I walk in the house, and he's like, hey. So, like, can we go to the Lego store today?
Cassie And I'm like, okay. Your brother I'm trying to be as nice as possible here. Now we can understand. Your brother has been taken in a helicopter to a hospital in Spokane because he's very, very, very ill. We cannot go to the LEGO store today.
Cassie We can't. And he's like, oh, wow. Gosh. Well, like, are you gonna be home tonight? And I'm like, no.
Scott Benner Because I need that Thanos glove pretty badly.
Cassie So I'm like, no. We're not gonna be home tonight. Your dad will be home tonight, but I'm not gonna be home tonight.
Scott Benner Right.
Cassie So he stayed home. We could have asked grandma to stay with the kids, but it just felt so confusing for them that he decided it would be fine if he stayed, and then he did drive up the next day. So he was up to us in the morning. Mhmm. We actually started education.
Cassie They had come in right about 09:00, and we were already sitting down with a diabetic educator. So we actually were on speakerphone, and so my husband's listening while he's driving up our through the first education session.
The End of Part One
Scott Benner Yeah. How did you find them? How was the in hospital education for you?
Cassie It was great.
Scott Benner Good.
Cassie It was great. It was like, it was so simple, but a lot of the education that they use gosh. I wanna say it came from a children's hospital in Arizona was the like, they had some YouTube videos that they had shown us that explained, like, what is a pancreas? How does it work? How does insulin work?
Cassie How does blood sugar work? All these things. And so you watch these little clips as you went through the education, and it just felt so basic that it was easy to understand. I had started working through that overnight while he was sleeping. And then, you know, you're reading about insulin, and you have to give insulin when they're eating and you know?
Cassie So when they finally come in, he finally wakes up. He's hungry, and it's probably I don't know. I think they let him eat at, like, 04:30 in the morning. And she's like, okay. Well, we're gonna we're gonna give, the insulin.
Cassie This is the carb ratio that the doctor has set. And, of course, by the time I got there, the doctor had been in, but I missed him. So I didn't get to see them till the next morning. So it hadn't really been fully explained. So then she's going to give him his first shot of Humalog.
Cassie And I was like, okay. So how long do we have to do this for? And she goes, oh, have you not seen the doctor yet? And I was like, no. I didn't get here until, like, 05:30.
Cassie And she goes, yeah. Okay. So he has to do this for the rest of his life. And I was like, okay.
Scott Benner You didn't know that at that moment.
Cassie I at that moment, I didn't know that. Even from reading the literature, I hadn't grasped that yet. Mhmm. Yeah. So
Scott Benner Wow. That's really a lot. Do you know what I mean? Like, just a ton to be dropped on somebody all at once.
Cassie It was yeah. It is a lot. It's a lot.
Scott Benner And how do you feel like you made out in the weeks after? Like and I'm talking about the first month or so, you've got the information that the hospital gave you. You're coming online from not understanding diabetes at all to your new understanding? Like, what was the first bit of it like? When did you realize that you needed to go find more information?
Scott Benner This episode was too good to cut anything out of, but too long to make just one episode. So this is part one. Make sure you go find part two right now. It's gonna be the next episode in your feed.
Scott Benner Head now to tandemdiabetes.com/juicebox and check out today's sponsor, Tandem Diabetes Care.
Scott Benner I think you're gonna find exactly what you're looking for at that link, including a way to sign up and get started with the Tandem Mobi system.
Scott Benner This episode of the Juice Box podcast was sponsored by US Med, usmed.com/juicebox, or call (888) 721-1514.
Scott Benner Get started today with US Med. Links in the show notes. Links at juiceboxpodcast.com.
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