#1666 A Year from Hell (and Back)
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Julie, a pediatric nurse and mom, shares her son’s type 1 diagnosis, her daughter’s thyroid cancer, and finding laughter, learning, and light in the middle of a storm.
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Scott Benner 0:00
Welcome back, friends. You are listening to the Juicebox podcast.
Julie 0:14
Hi, Scott. My name is Julie, and I have a 17 year old son with type one who's had it for about a year and a half.
Scott Benner 0:22
Now, if your loved one is newly diagnosed with type one diabetes and you're seeking a clear, practical perspective, check out the bold beginning series on the Juicebox podcast. It's hosted by myself and Jenny Smith, an experienced diabetes educator with over 35 years of personal insight into type one. Our series cuts through the medical jargon and delivers straightforward answers to your most pressing questions. You'll gain insight from real patients and caregivers and find practical advice to help you confidently navigate life with type one. You can start your journey informed and empowered with the Juicebox podcast, the bold beginning series and all of the collections in the Juicebox podcast are available in your audio app and at Juicebox podcast.com in the menu while you're listening. Please remember that nothing you hear on the Juicebox podcast should be considered advice medical or otherwise. Always consult a physician before making any changes to your healthcare plan or becoming bold with insulin.
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Julie 2:35
Hi, Scott. My name is Julie, and I have a 17 year old son with type one, who's had it for about a year
Scott Benner 2:43
and a half now, 17 year old son, year and a half. Do you have other kids?
Julie 2:47
I do. My oldest daughter is 23 and my middle daughter is 20. So my son, Kyle is my youngest,
Scott Benner 2:56
and he's had type one for a little over a year, year and a half, a year and a half. Yep. Any other autoimmune in the family? How much time do you have? I want to hear
Julie 3:04
about it all. Okay, so my oldest daughter has an immune deficiency, IGA deficiency, which sounds scarier than it is. And Kyle, my son also has that I have chronic hives and Hashimotos. So does like throughout my extended family, there's the same thing with thyroid and that kind of thing. Okay, so,
Scott Benner 3:29
yeah, awesome. How long have you had Hashimotos?
Julie 3:34
I was diagnosed probably 15 years ago, but I don't really have any symptoms of it. I'm not on medication or anything like that for it. Just, you know, what
Scott Benner 3:45
have I told you first? I want to tell you this. I barely got through high school. I want to make sure you
Julie 3:50
understand that. Okay, okay, good, good to
Scott Benner 3:54
know. I considered going to college and took one class. It was an English class. I got an A, and then I stopped going. And that was after I was an adult. Because my wife was like, you could have gone to college. And I was always like, no, I'd be terrible at it. And she's like, No, you wouldn't. And I took a class to show you the difference between how I think and how my wife thinks. She's like, Look, you got an A. Keep going. And I was like, I got an A. Why do I have
Julie 4:14
to keep going? You're like, I totally proved it to you.
Scott Benner 4:17
If I went back long enough, I'd have a degree, and then what? Anyway, there's a little look into me, but I'm gonna tell you a quick story. Okay, my wife has thyroid. My daughter has thyroid. My son has Hashimotos for sure. Okay, my wife my daughter, haven't been tested to see if there is this autoimmune but, I mean, like, Wouldn't surprise me, right? How did we figure out my son had Hashimotos? This is the part you care about. Okay? The first time we thought it was something, he started acting much differently, like his just his personality flipped. He got like he was unkind and short tempered. And like all this stuff. And while my wife's walking around going, like, What's wrong with him, I was saying to myself, Oh, I remember this from when we got you diagnosed with thyroid problems because you were I was like, I know what this is going to be, right? So I took him to the doctor. His TSH came back a little elevated, but back then, I didn't think of it the same way as I think of it. Now, had I thought of it that way, then I would have said, like, hey, medicate him. He's definitely got this. We had to go through a couple of rounds. He had a spike in his TSH, that then went back down again, and classically the way his, you know, doctor thought about it back before we found a great Endo, they were like, Oh, that happens sometimes, and I'm like, oh, okay, yeah, but about six months later, it was a college baseball player and it was covid time. Was it covid or something? It was home for the holiday. So one of the other is in the house, and, you know, in the basement, there's like a, like a rack where he can lift. It's also the same weight set that I ignore and don't, don't use. Sure he's downstairs lifting. He comes flying up the stairs in a panic, and he is covered waist to neck in hives. Stop. Yeah, hold on. See, Julie, this is worth it. Just hold on a second. So we do all the things that a person would do in that situation, right? We took him to, you know, a dermatologist and, like, you know, proper channels, and they hit him with, like, a big and I always get this word wrong. Is it histamine blockers? Okay? Histamine? Yeah, I think my pronunciation is not always good, and hit him with a blocker. Then they added another one, and before I knew it, he was taking a cocktail of three over the counter blockers at the same time, and nothing changed. If he got upset, if he got excited, if his body heated up, he broke out in hives. The only thing that stopped the hives was time, right? And because it was November, and we started realizing that it had something to do with his body temperature. He would sometimes go outside in shorts and a T shirt in the winter and stand out there, freeze his ass off, bring his body temperature down, and the hives would go away. Oh, I get that. I've done that. Yeah, we were playing cards one night. It was definitely covid Because we were playing cards one night because we haven't played a game since covid, I have not sat with my family and played poker. By the way, I gave my children. This is what covid did to us. I went to the the ATM got cash out, gave it to everybody, and I was like, Hey, we're gonna play poker. We did that too. I was like, if you win, you can keep the money.
Julie 7:35
We ordered a table on Amazon. Yes, I
Scott Benner 7:41
didn't know you were gonna doubt yourself as being a Caucasian lady so quickly in the conversation, but that's awesome. He just laughed. Something funny happened, and he started laughing, and then boom, broke out in hives. Now this went on for a while, and it was getting really upsetting. We were talking to the doctor about biologic injectables the zolair, yeah, that's where we take, yeah, that's where we were. And then one night, one late night, when I was absolutely just bereft, worried about him, I was up googling before chat GPT, and I tripped upon an NIH article that said, in very, very rare cases, symptoms of Hashimotos can include hives, and we put him on medication, and he hasn't had hives since then.
Julie 8:32
Wow. It's not supposed to be about me. I feel bad now. We're getting to it. I was at Mayo Clinic. I've been to, I was in the ICU for a week because I would get, it's called angioedema, where you get, like, tongue swelling and all of that. So, yeah, this has been quite
Scott Benner 8:50
I'm not saying this is your case, but what I am saying is, if you have Hashimotos, but you're not taking medication, would you tell me what your last TSH was?
Julie 8:59
Um, I don't remember. I just know every single time it's normal,
Scott Benner 9:07
I want you to go look, it doesn't have to be now. And, and I'm gonna say something. Say two. I'm gonna tell you if it's over two, 2.1 just gives 2.5 Yep, get the medication.
Julie 9:17
Oh, well, how do I get a doctor to do that? If they say it's normal. You got to get a good
Scott Benner 9:21
doctor, okay, it's also not normal. It's where most people's fall when they test it. So when they tell you what normal is in a blood test, it just means that most people fall in this range, right? So they call that the green range. What I'm going to tell you is, you go listen to episode 413, of the podcast. You'll listen to Dr Addy Benito, talk about thyroid, and when you get done, you're going to be mad and you're going to go get thyroid medication. Do you have, oh my gosh, 10 years of my life, really, it's gonna I expect a holiday card. If this all works out
Julie 9:52
for 13, okay.
Scott Benner 9:56
Do you have any other thyroid symptoms? Are you hard? To get rested. Does your hair fall out? Do you have dry skin, brittle nails? Any Well,
Julie 10:04
I'm 50, so we have the whole menopause thing. So you know, yes, yes, exactly. If
Scott Benner 10:12
menopause doesn't kill my wife, I'm gonna be amazed.
Julie 10:17
I mean, the nightmare,
Scott Benner 10:19
yeah, not good anyway. I hope that helps you. Thank you. I hope my son's random story helps you. And if it does, seriously, let me know. Send me a note if it doesn't help. I don't want to hear back from you if it doesn't work. Okay, yeah, okay.
Julie 10:34
So, yeah, yes, thyroid is crazy,
Scott Benner 10:37
yeah, thyroids really is crazy, yeah. If I can make a suggestion, don't do that thing where you said, Well, yeah, I'm tired, but I'm older, like, because, because, okay, I'm telling you, a little bit of Synthroid, you know, tears and whatever they end up giving you, if you notice, it brings down your TSH, but your symptoms don't go away, you know. I mean, are you a very tired
Julie 10:59
person? I am, yes, I am, but I don't really sleep. But, I mean, I also have, my oldest has thyroid cancer right now, so, like, I'm seeing how tired she is right now, so I don't think I'm as tired as her. But you
Scott Benner 11:15
also don't have thyroid cancer, right? Okay, listen, I think this is it. Don't, don't ignore your own health just because you're helping your kids, etc so on. You don't need me to tell you that, all right. So this kid of yours, yes, goes out and gets himself some diabetes, yes. How did that happen? How did you notice it?
Julie 11:32
I didn't notice it. That's what is so scary to me, because I'm a pediatric nurse.
Scott Benner 11:39
Sorry, it's
Julie 11:41
not funny. I'm still not okay about it. Go ahead. Go ahead, tell me what happened. I was really not okay about it. He had a well visit, like his yearly physical in November of that year, and everything was fine. And the only thing we were discussing there was some fatigue and a really low heart rate. But looking back, his heart rate had been in the 40s for a few years. He's an athlete, really, swimmer, basketball, that kind of thing. That was all we really talked about. But then in December, he started to complain of leg cramping, to the point where he was asking me to make, like, ice baths without ice. Like, just make cold, cold water, you know what I mean. And he would come home from practice and just really complain of his legs really hurting, which is not like him. And we were at a game, and he pulled himself out of the game, and this was sophomore year where he was a swing player on varsity, so he was trying real hard, you know what I mean, to really do well, and for him to leave practice was just shocking, and I knew something was wrong. Never in 1000 years did I think type one diabetes. I was thinking electrolyte imbalance. So what do I do? I'm pushing fluids. I'm pushing Gatorade. I'm pushing propel, you know, he's seeing the trainer there, and I see them, you know, rolling out his legs at each game and giving him the packets of electrolytes. And he just couldn't play. And then we were in a game like our biggest game of the year, and two minutes left in the game, I think it was either tied or real close, he goes up for a shot, and he collapses and couldn't get up. So I go down, and I'm like, is he being dramatic? Like, this is weird. And we kind of, like, pull, like, almost carry him off. He goes to see the trainer. After about 30 minutes of massage, he still couldn't walk. So they said, we think, we think you need to take him to the ER, yeah. So we get to the ER, and they find everything looks okay on his labs, except his, what's called CPK, was high. I don't know if you're familiar
Scott Benner 13:56
with I am, because my daughter had a really high Cpk one time, which she had a ton of muscle pain one
Julie 14:01
time. Oh, really, was this before she was dying? Oh, no, she was baby.
Scott Benner 14:05
Yeah, it wasn't before she was diagnosed. It was one summer while she was playing a lot of softball.
Julie 14:10
Oh, okay, yeah. We usually see it in, like, real, real high levels in peds, like, with crushing injuries, like if you're in a car accident, or if you run a marathon and you're not ready, you know there's like muscle death, almost. But he wasn't, I mean, tremendously high. So they diagnosed him with what's called Rhabdo, which you treat with fluids and monitor kidney function, because it can cause kidney damage. I was very surprised he had Rhabdo, because he, I mean, yes, he works out excessively, but it wasn't like a new thing. He had done nothing that would indicate like, oh, he really went at it and it caused this at that ER visit, his blood sugar was 160 and I remember vaguely being like, why is he 160 but then I thought, well, he had had four Gatorades. And we came right here. So I honestly didn't think anything of it. The physician didn't say anything of it.
Scott Benner 15:05
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Julie 17:26
I didn't, I don't know, it just didn't do anything for any of us. As he got the IV fluids, his Cpk level started to come down, so they did not admit him, and he was able to walk. He still had pain, though. So we go home. They say, Stop basketball for a week, hydrate like crazy. So I see him drinking and drinking and drinking, and I'm like, Good job, bud. This is what the doctor said to do. You know, thought nothing of it. So we go for our follow up, and he's telling the doctor. The doctor said you can probably go back to basketball when you feel better, but it's been a week, levels are better. You know, you can probably go ahead and work out. And he said, I can't. And we were in shock, because, I mean, I know your son's an athlete, so you understand, like, Yeah, they really want to, I mean, it's all they care about. So he said he then he started to describe the feeling as weakness. So then I went down a neurological path, like, in my nurse brain, I was like, Oh my gosh, what is going on? He's got two immune deficiencies. Like, don't we have enough? Are you kidding me right now? Like, do I need to see a neurologist all of that? Yeah, we go back to the doctor a third time. They say, everything checks out, you know, just continue to to hydrate and just rest. So we're walking out, I can, like, picture where I was standing. He looked at me. He was looking at the paperwork, and he's a guy trying to get buff, you know. And he says, Mom, why would I have lost 10 pounds in a month? And that got you Yeah, yeah. So I called his pediatrician from the car. I said, he lost weight. Can you order, you know, a fasting glucose for the morning. But really, I still wasn't convinced, because I was like, I don't know, this is weird. And she said, Well, let's do a celiac, you know, labs as well. So I was like, Okay, great. Next morning, take him to the lab. Of course, I log in and see it's 560 his fasting glucose that morning. So I go to pick him up at school, take him to the ER and off we went
Scott Benner 19:34
to tell him in the car. Do you let them tell him at the hospital? Oh,
Julie 19:37
I told him in the car. And I didn't have a great experience at at our hospital. I mean, the ER, doctor was like, well, this may not be diabetes. And I was like, Okay, can you just call endocrine like, you know, there's really nothing else that I know of that can make your glucose,
Scott Benner 19:54
yeah, this is gonna be it.
Julie 19:56
This is it. This is it. So the next morning, we. He, you know, did the whole eight hours of education and, and that was it. So I really missed the boat, and then I go to his room that night and see, you know, like, 26 bottles of water, and,
Scott Benner 20:12
yeah, the whole thing, how long did, was the process from when you now, in hindsight, think that the type one was coming on, and when you figured it out and you were in the hospital, I used to hate ordering my daughter's diabetes supplies. I never had a good experience, and it was frustrating. But it hasn't been that way for a while, actually, for about three years now, because that's how long we've been using us Med, US med.com/juicebox, or call 888-721-1514, US med is the number one distributor for FreeStyle Libre systems nationwide. They are the number one specialty distributor for Omnipod dash, the number one fastest growing tandem distributor nationwide, the number one rated distributor in Dexcom customer satisfaction surveys, they have served over 1 million people with diabetes since 1996 and they always provide 90 days worth of supplies and fast and free shipping us. Med carries everything from insulin pumps and diabetes testing supplies to the latest CGM, like the libre three and Dexcom g7 they accept Medicare nationwide, and over 800 private insurers find out why us med has an A plus rating with a better business Bureau at us med.com/juicebox, or just call them at 88872115143, 87211514, get started right now, and you'll be getting your supplies the same way we do.
Julie 21:48
I honestly don't know. I mean that July, he had covid, but he he wasn't real, real sick with it, like it was very mild. He gets sick a lot because he has those two immune deficiencies, and he takes a daily antibiotic for those when I look at photos, I see about three months of paleness and just not looking great. I'm gonna cry now, and I'm not a crier. I didn't see it like I didn't see it in real time.
Scott Benner 22:14
Yeah, well, I would say three months is a reasonable amount of time. The other health issues, confuse the picture, the being the athlete, I think you did a great job figuring it out. Oh well, thank you. You're very welcome. My kid was almost dead, so, you know, oh, I
Julie 22:31
can imagine, what was she, too, right? Yeah, yeah. I mean, and you look back and you feel like an idiot, because, well, I don't know how you'd see in a two year old, other than the drinking because she
Scott Benner 22:41
was, she looked like a runway model in the 80s. Oh, she was so thin. And then you don't realize it when it's happening, for some reason. Yeah, it's only a couple of pounds too. If I told you, the difference on her frame between 19 pounds and 17 pounds was drastic, really, yeah, but you just didn't, I don't know. Just didn't know. Yeah, yeah. Yeah. I think back on so many different little things that happened along the way that, you know, it's funny. I hear everybody else say it, but like, here I am saying it too. On their face, each of them is horrifying, and you don't know how you didn't get from like your son tried to take a shot playing basketball. He's a 17 year old. Kidney collapsed and couldn't stand up for a half an hour, and you were like, he probably needs a Gatorade in the world. Have you ever seen that happen? You know what I mean, right?
Julie 23:30
And I think of myself as a good nurse and thorough and but as soon as he said weight loss, I was like, Oh
Scott Benner 23:38
yeah, I'm a reasonably bright person. I once took my daughter's diaper off and her bowel movement was so dry and devoid of moisture that you could crush it like dust in your hand. And I was just like, huh, yeah.
Julie 23:54
Well, lots of two year olds get constipated. I mean, that's a frequent call we get exactly.
Scott Benner 23:58
Well, I did take her back to the doctor. But then the doctor was like, Oh, that's weird. So, yeah, exactly, exactly, ever drink more? And I was like, yeah. Meanwhile, I do. I always look back, as crazy as it sounds, if I would have brought him the diaper, I think he would have looked at it and gone like, oh my god, take her to the hospital, right? You know, like, so anyway, please don't beat yourself up about it. Yeah, there's plenty of stuff going on. Is there any autoimmune on Is there any autoimmune on your husband's side? Can we blame any of this on him or
Julie 24:25
none? No, none. What a shame. Sorry. I know, I know his family lives to like, over 100 like, I mean, it's so healthy.
Scott Benner 24:33
Hey, I want to apologize to you. Made fun of you for the card table, but I bought a pizza oven during covid, so I just,
Julie 24:39
oh, pizza. I don't, I don't apologize for that.
Scott Benner 24:46
I gotta whip that thing out and use it again. First of all, the pizzas are awesome out of it. But, you know, the problem is that I like the cold, ferment the dough. It takes days. I don't have that kind of time to sit down today to have pizza three days from now, exactly. My goodness. Much easier to order out. I'm gonna do it though. Arden wants to have a bunch of friends over. Hey, if you girls are listening, what's up? So Arden is at college, and she told me I should let her tell this story. I'm just gonna tell a tiny bit of it. Okay? She goes to her friend's house where she lives at college, and her friends got roommates. What's up? Girls? Apparently, the roommates listen to the podcast. But no way. She probably hates that. They don't have diabetes. I don't think she hates it, which is interesting. Yeah, they don't have they have no connection to type one whatsoever. So she asked them, and if I'm getting this story wrong, you girls can come on or something. But I believe she asked them why, and they were like, it's a good podcast.
Julie 25:41
So it is a good podcast. Appreciate that so much.
Scott Benner 25:45
Wonder how many people who don't have diabetes are listening
Julie 25:48
sometimes, it's not always about diet. I mean, it is,
Scott Benner 25:52
most of the time it's not about diabetes. I don't know how closely you're listening. Funny.
Julie 25:56
Sometimes it's dramatic. Listen if
Scott Benner 25:59
you make a podcast just about diabetes. I don't know how you would make a podcast, so Right, yeah, it would be something, in my eyes, it wouldn't be a podcast, but it'd be a thing you did once in a while. Nevertheless, okay, so now we've got a diagnosis. Yeah, got a little extra guilt. You've got three kids. I'm sure you already had plenty to begin with, but now you have, you have a little extra Yes, I want to know about pathway in the beginning, how little or a lot did your background help or hurt? And how did you find those first like, I'm going to ask like, first 60 days.
Julie 26:35
Okay, so the first 60 days my background helped me zero other than the fact I knew what it was. I knew it was autoimmune. I knew it was not his fault. I just thought it was a insulin was a dose like, I mean, I'm old enough that I remember, like when I was in the hospital working like we had a sliding scale. I mean, we checked your blood sugar before we fed you, if it was 300 we checked our little scale, we gave you enough, and here's your food. Honestly, Scott, I never one time went back in to see if they finished the food to reach I mean, that was not a thing, right? I knew enough to respect insulin like I did know it was important for me to give what I was told. If that makes
Scott Benner 27:26
sense, I do. I just had this conversation with a nursing student, which was really interesting, because she knows Arden, and I think she's having this, like early onset come to Jesus moment where she's realizing I know what Arden's life is really like, and I know what they're telling me about diabetes. And then she kind of extrapolated and said, I wonder what else I'm learning about that I feel like I have a full grasp of that I don't, in any meaningful way, understand. Wow. Yeah, so it's an interesting gonna be an interesting path for Yeah, is he honeymooning? Or is this
Julie 28:03
like, well, first of all, can we change that name? I've
Scott Benner 28:07
said the same thing. A honeymoon is supposed to be a fun time, really, Turks and Caicos during the honeymoon, I'm on the beach and everybody wants to have sex. It's not that, yeah,
Julie 28:18
it is not like the first after about a week and a half, we spent an entire night feeding him to the point he couldn't even get food in. I mean, it just stopped. And I remember it being mentioned like that honeymoon, you know, with teenage boys, can last a while, so you're really gonna have to watch. And it was that first eight hour day. And I just remember not even, like, I mean, they, in their defense, they may have explained it further and I blocked it out, but I remember being like, oh, so he'll need a little bit less. But, I mean, we went from like 20 units of Atlantis to like five.
Scott Benner 28:55
Yeah, that's a big swing, especially if you've injected this money. Yeah, you know what the use of the word is? It really is. It's making fun of marriage, because the inference, the unspoken inference, is this part is going to come to an end, yeah, yeah. You've been married a long time. You know what I'm
Julie 29:13
saying? Yeah, yeah, I do. I do. But I mean, I couldn't wait for
Scott Benner 29:17
it to come to an end. That's how most people feel. That's how most people
Julie 29:21
feel. Yeah. I mean, once it ended, everything got a I don't ever want to use the word easy, but easier, more predictable, yes. And, I mean, there's still constant changes, all of that, but nothing that dramatic. I mean, it almost like happened in an instant,
Scott Benner 29:37
really, like somebody, someone made a decision and flip the switch. You're like, All right, here's all your diabetes. You can have it all
Julie 29:44
now, yeah. And, I mean, no, I mean, when the honeymoon started that next day, we gave no insulin for food, and what killed me was, is I could see it in him. He's like, Oh, I can handle this. I'll just do likelantis at night. Yeah.
Scott Benner 29:58
This is super easy. You? Yeah. How long did that feeling of last?
Julie 30:03
Well, I mean, it slowly started to creep back up. And I would say the honeymoon only lasted for him for
Scott Benner 30:10
maybe six months. Okay, and did he have a pump during that time?
Julie 30:15
Or no, he does not wear a pump, okay, yeah, he has agreed to trial one in April after basketball season and before college.
Scott Benner 30:25
You know, when those little you know what? I mean, you've got kids, I've got a couple. They agreed. You agree. Just do it. Leave me
Julie 30:31
alone. Yeah? Make me argue with you, my choice. I'm like, okay,
Scott Benner 30:36
pardon I'm an adult. She said to me the other day, I'm an adult. Yeah, I don't need to be told. And I was like, what? Yeah, eight minutes later, she's like, could you make breakfast for me? I was like, I thought you were an adult.
Julie 30:47
What the hell happened? Exactly, exactly? It was just, you know, and I, I mean, I am so incredibly grateful for the 15 years of normal blood sugars that he had. But to be diagnosed, you know, rate when you're craving independence and you're going to drive a car and you don't want to be home ever, yeah, that's a difficult thing. So I do know developmentally, like, it's important to give them a lot of control choices. So the deal was, you know, if you know, you can keep things at a I don't know what the word is controlled. I hate that word. Is he controlled at a reasonable place? Yeah, is he regulated? Now I'm like, Oh, dear God, I can't take it. Yeah, we're still
Scott Benner 31:31
working on controlling the regulation, but I'll get back to you when everything's copacetic, yep, yep. And then we'll be fine. Well, then we'll be fine because you're in the medical field. So everybody uses that phrasing to you, right? Yes, they do. They do. You're like, Oh, if you really understood this, you would not be saying this to me exactly, exactly, well. So, you know, I'm gonna tell you that I think it's a very, really clear minded way to think about all that, like it does suck getting plopped down in the middle of like, just when your kids trying to exert himself and find his way, and, you know, in a natural time when they separate a little bit from their parents, and it's supposed to be stuff like staying out a half an hour later than you're supposed to, you know, like pushing back a little bit. It's not supposed to be like, Oh, I didn't Bolus and my blood sugar has been 250 for three hours, right? That's a really tough place to be, where safety and health intersect with I mean, because you've got two older kids, you already know about this. You already know, like, you got to let them, like, push back.
Julie 32:29
You got to let them mess up. Like, one night I like, I told you, like, until the year we had, I really am not a crier, but like, I remember crying because I got a text from he was at a friend's house, some girl's house, and there was a bunch of kids, and they had done like a fire pit and, you know, all this stuff. And I see his blood sugar going up, and it shot up to, like, 350 and I was like, What on earth? And he texts me and says, Mom, I'm so, so sorry. The mom brought out hot chocolate, and I was too embarrassed to go get my insulin. And I was like, you're supposed to be apologizing to me for drinking a beer like not hot chocolate, right? Yeah, not having hot chocolate. You know what I mean,
Scott Benner 33:17
not wanting some cute girl to see him. Have to go get a bag before he drinks the hot chocolate or something like that.
Julie 33:23
Yeah, I'm like, this is not the quote, unquote trouble I'm supposed to be dealing with.
Scott Benner 33:28
Did you tell him that he had a pump on? He probably could have just opened his phone and pushed a button and pretended he was on Instagram for five
Julie 33:35
seconds. I mean, I say that probably 10 times a day, but, I mean, I also understand his fears with a pump, and he hates having things on him. I mean, the CGM is a no discussion, yeah, but he can't even stand that. Tell me his concerns with the pump. Well, I see he doesn't. I think he just basically doesn't want anything on him. But I think there's some fears with malfunctioning Oh, okay, if I think too hard about that, that stresses me out too. But then I look at all
Scott Benner 34:05
the Oh, are you sayings of 1000s? Are Yeah, are you saying you're worried it's gonna, like, stand up and revolt and give them all the insulin? Not really
Julie 34:15
that. But we have such trouble with CGM readings sometimes that, like, I think those times are what scare him. Like he'll say, Mom, it says I'm high, but I feel low. And then, you know, you'll check it and it's just wrong. And then you think, Well, my gosh, my pump would have given me insulin. You know what I mean? Now I know that that doesn't happen as often as high blood sugars too, when you don't have a pump. But he's really good about double checking his CGM, so I don't think he'd have a problem with that. But the deal is, before college, though, he's gonna have to wear a pump,
Scott Benner 34:52
so I wouldn't wait till five seconds before he's leaving. I know, I know he's saying April. Does he enjoy the spring? Why did he say April? Well, he wants to wait until after basketball season. Oh, see, I would think of it the exact opposite way. And he will. He will one day too, by the way, just by the time he, you know, that part will be over. By the time he gets to it, there'll be a moment when he would, he'll think, oh, basketball might have been easier if I would have done that.
Julie 35:16
I agree. Yeah, I agree. He's definitely a kid that needs to come to his own. I mean, I've started to back off this year a little bit, and I am seeing him treat better, like he has his lowest so for the last, like, I'd say, three or four months, I sort of stopped constantly texting him, like, let's crack, let's crack, let's crack, and he's doing it now. Okay, good. You know what I mean. So he's definitely someone that like it wants to it has to be his decision. Does that make sense?
Scott Benner 35:46
Well, I would also tell you that what you're describing is incredibly common, and most people go through what he's going through. Oh, really, yeah, no, 100% okay, I hate saying this. I imagine somebody's listening to me like, oh, here comes his guy's been making this podcast on time. He's talked to a lot of people, but I've talked to a lot of people. That is an incredibly common story. So yeah, he's not like some outlier, who's, you know, who's like, oh, you know, he's different, or he's this kind of person. I'm gonna tell you the kind of person he is, this human and right? Of course, nobody wants anything stuck to them. The rest of that sentence is that one day it won't bother him anymore, very likely. Yeah. And you know, of course, you're worried that sometimes your CGM says that you're 200 when you're 75 Oh, my God, look at me. Insulin. What happens? Like, Oh, I don't there's a lady on here the other a few months ago, like a full grown adult who told me that she's very concerned that somebody would hack into her insulin pump and kill her. And I was like, who's looking for you? Anything China's coming for you? Or something like, you know, what do you think they got, like, a satellite over your head? They're like, we're gonna zap this lady with insulin. Big Brother's gonna take her out. Yeah, we're really mad about these terrorists. I'll tell you what we'll do, random lady in, like, South Dakota, we're gonna, let's knock Patty over in Tuscaloosa and like, so but then we talked about a little bit, and she laughed, and she's like, this is completely ridiculous. I'm like, yeah, no, I know, but we dug into it a little more, by the way. And she was an older person, and she was raised very fearfully. Oh, okay, it's a really honest conversation where she's like, I'm afraid of a lot of people, oh yeah, because her parents had biases and that they layered on her, and somehow they translated into her thinking like someone was gonna hack her in something, yeah, yeah, anywhere in between that one and the one that you're, you know, your son, is like, Oh, I understand it. Like, I get it too. Like, our CGM is not perfect all the time. The only thing I can tell you, is it in the big picture, it's not a problem,
Julie 37:43
right? No. And I know that. And I would say, honestly, his major issue with it
Scott Benner 37:49
is you don't want to see it. Doesn't want people to see 17 trying to get, Oh, I almost said something you don't want to hear Yeah. He's trying to get girls to talk to him. I was gonna use the L word, you know, like he's, yeah, he's working on stuff, yeah, yeah, yeah. You don't go to a fire pit because you're cold, right? There are better ways to stay warm. There are not better ways to meet cute girls, exactly. Well, you're doing a good job. It sounds like,
Julie 38:17
I don't really think so, but we're doing the best but, but he's doing a good job. He's doing a good What's this? A 1c the last one was 6.40
Scott Benner 38:25
my goodness. What are you out of your mind? A 17 year old kid is a diabetes for a year and a half with a 6.4 a 1c is
Julie 38:33
doing awesome? Yeah, yeah, he does. I mean, I laugh because I don't think we've ever had a meal where it was one shot. And I always thought it was one shot for a meal, you know. But, you know, he's like a 17 year old, there's high fat, there's high protein. I never knew that was a thing, you know, and he just does it. So I'm like, if you're willing to do this, the injections, I guess we'll just go with that for
Scott Benner 38:58
now. I also want to say this, if it works for him, then, awesome. Yeah? Like, I don't, I'm not telling anybody who's listening. You have to be on a pump.
Julie 39:06
Oh, I don't get that from you at all ever. I don't feel like that at
Scott Benner 39:09
all. I listen. If you're buying a pump, you go into the show notes, you use one of the links, and you help me out, right? But, like, but if you, but I don't think you need one, right? I think it's very specific to your lifestyle and what, what it is you want, and, you know what? Listen, I'll, I'll play devil's advocate. The other way. Maybe he really doesn't want the thing stuck to him. Yeah, and he'll do this his whole life and be cool with it. I would say that as long as he's willing to inject, you know, Pre-Bolus and injection, and then 45 minutes later, realized, like, Oh, that was not nearly enough. And do it again. Like, if he's not, if he's not concerned with the injections, then who cares?
Julie 39:42
Right? Right? Yeah, it's just, I feel like a pump would help more. Well, I know it would with just the change. I mean, we change his he's on tracebo Now instead of Lantus. And, I mean, we change that dose once a week, you know what I mean. And the pump, I feel like would just really handle that.
Scott Benner 39:59
I'm gonna go. The other way again, and I'll tell you, yeah, that'd be great. It'd be a lot easier. But, you know, like, it's not, I think what it highlights is that this isn't just a nuts and bolts idea, right? Like it's a thinking, feeling person mixed with this difficult to understand math problem that's also a science experiment that's also, you know, dangerous, and, you know, potentially life altering. And so there's that pressure, and you gotta, like, squish it all together and come to some sort of an agreement with, you know, whoever it is you make agreements with.
Julie 40:34
I love what you just said. I am I'm living in a science experiment. I'm prolific. I just want to say it never ends. That is such a good that's such a great wait. I really like that.
Scott Benner 40:49
I'm glad you're happy, joy, but it's gonna get easier. It will eventually feel normal and like, like you're not fighting uphill all the time. You know, hopefully. I mean, listen the podcast. He's already got a six, four. He seems to understand what he's doing to some degree. I mean, is he having a ton of lows all the time?
Julie 41:05
He has lows because of usually, like harder workouts at night we did for our first time. I'll never be the same. Have a had to use vaccine me to three weeks ago. Oh, that was terrifying. We don't understand it. I mean, nothing makes sense, but it really doesn't make sense. He just dropped one night and eating, eating, eating. I had been in there 15 minutes gave him it usually what works for him at night is one bite of one of those Z bars. Okay, takes a while to bring him up, more than 15 minutes to bring him up, but it usually levels him out. Usually levels him out a little bit. We had been doing that. We were doing juice, candy, everything, and he was like, 3840 I went in after 10 minutes, and he was unresponsive. Okay, I still don't understand what happened. Cannot figure it out.
Scott Benner 42:00
Was there a hard workout earlier in the day? There was hot day on top of everything else? You remember?
Julie 42:07
No, I'm not sure. It just, I mean, I know most people like have never had to use it was weird. And for about two weeks he kept himself running a little higher when we were all fine with that, because he got nervous. Oh, it was terrifying. I mean, it was absolutely terrifying, right? Yeah. I mean,
Scott Benner 42:25
listen, 38 blood sugar, I hear you. That's tough. And when you're used to using something that's slower acting, but then holds them up, and then you need faster acting in that situation. And then, which do you mixed in the juice, and it didn't, it didn't hit him fast. We had been
Julie 42:39
doing stuff for two hours, juice and candy. Yeah. I mean, he was like, in the 60s, 50s, but it just wouldn't move. Did your finger stick? Yo? Yeah? Like, yeah, 15 of them. You know, the thing was just reading low. So I was doing finger sticks, like, every five to 10 minutes. And he was asleep. It was the middle of the night, but he was like, drinking the juice and eating the food and and then I went back in. I was like, this is, oh my gosh. It said low. So I went running in, and he was just out of it.
Scott Benner 43:08
You want some of my hard earned advice on this? I want all of your advice. Okay, so if this happens again, I hope it doesn't. He doesn't go back to sleep. He wakes up. Okay, you don't leave the room. Okay. The other thing and, okay, all fast acting, simple sugar, stuff that gets absorbed quickly, anything that like, you know, it's, it's easy to just drink the juice, but then the juice has got to go into a stomach, and it's still got to be absorbed. The glucose gets absorbed much more quickly through the lining of your cheeks, really? Yeah, so I never thought of that even just holding the juice in his mouth, or like gummy bears and like you just keep chewing them. Don't swallow them, keep them in your mouth longer. That kind of stuff might help a little bit too. Okay, so I obviously don't know what happened to him, but if his digestion was slowed down for some reason, it might have slowed down the bump. Nothing wrong with using the back semi. That's it. Was a great call. That's my high level look at that. Okay, yeah, I know you've probably a million times have seen a low blood sugar, given something 10 minutes later. It's okay. You're in the middle of the night. You're trying to do that thing. You have that nurse brain too, like, I did the thing I'm supposed to do, so I'm done now, you know what?
Julie 44:28
I mean, yeah, I mean, I kept doing. I mean, I always thought juice was the fastest.
Scott Benner 44:33
Juice is fast, like, for certain, but like, you know, I don't know what could have been going on. Like, you know, had he had a fatty meal Earlier that evening. 100% okay, so then his digestion was probably slower. Interesting, yeah, okay, yeah. I mean, listen, most of the time you're not gonna have to think about it like that, but I would just say, like, emergent response, don't leave the room. Don't let him go back to sleep till you get it straightened out. Okay, yeah. Like, light on, get up. Sorry, this is a problem. We're all gonna sit here together in our underwear and fix
Julie 45:04
this. Uh huh. Okay, yeah, that was crazy. I think
Scott Benner 45:08
people who have children who don't have diabetes are not accustomed to sitting in their underwear in people's bedrooms in the middle of the night thinking like, oh my god, the floor's so cold. Or, I mean, my daughter's 21 and I'm 54 and I'm in my underwear, and she's like, not really in. There's no other normal situation where we'd be together like this anymore. She's in like, a bralette. It's just ridiculous. You know, so dumb. We've seen each other like, probably look so terrible so many times. Nevertheless, also, any number of algorithm based pumping systems would probably, I mean, just think about it right, like his. It would shut his basal down throughout the evening when it thought he was getting lower. It probably would have avoided this. Very likely. Could have replacement, yeah, yeah. Does he have a pump he's leaning
Julie 45:56
towards his only one he will even discuss is tubeless, is the Omnipod?
Scott Benner 46:02
Yeah, yeah. So I believe my link could get you a free trial.
Julie 46:06
I know I have it on there. Yes, yes, I've used your links for this. Julie contour next, and thank you so much. My dad got one. My mom got one. Also, I can have extras. Awesome. You hear that guys? Contour, next friend Andrea got one and brought it to me
Scott Benner 46:26
with my link. Contour, next comm slash Juicebox because I wanted to have extras. Thank you. Look at you. You're hoarding meters. Sorry. Contour, they're not sorry. They're happy for you to have the meter, trust me. Cool. So, all right, we're 45 minutes into this now. It seems like a good time to ask why you wanted to come on the podcast.
Julie 46:45
I think I just wanted to because of, like, the autoimmune history and the crazy year that we had, the fact that I was a nurse and missed it. I think would speak to a lot of people because, you know, you think you aren't going to miss a trick with your kids, and I missed the trick. But can I
Scott Benner 47:05
say something that I've said before, and I've gotten some pushback from nurses sometimes, and sometimes, by the way, I also get the exact opposite response. Some of the people who have struggled the most with having their kids diagnosed and been on here have been nurses.
Julie 47:21
That doesn't surprise me at all, because we're very type A this is what you do, and this should fix it, or, you know what I mean, and it's always one to think we see the zebra running at us. It could, you know, leg cramps can be from dehydration, you know what I mean. And
Scott Benner 47:39
I've come to believe that it's somewhere a mix between that you're in nursing school and obviously nursing school is a whirlwind, right? They're just throwing stuff at you constantly, and it probably by the time you get done, you probably feel like, I now know everything about everything, right? And you don't. You won't realize till you work for a while that you know a little bit about a lot. Yeah. Couple that with how diabetes is managed in the hospital setting, which is to say that, like, it's not really.
Julie 48:05
I mean, I am terrified. I stay up at night thinking about him under anesthesia. I don't know why, really, yes, because who is going to monitor his blood sugar?
Scott Benner 48:16
Can I tell you something? You throw one of those algorithms on him. Arden uses trio. It's awesome. And you're fasted, and you could probably stay fasted forever without getting low. Arden just had her tonsils and her adenoids out. Oh, were you in Rec? No, why about the diabetes part? Yes, I know how to fast Arden so that her blood sugar doesn't get low. Okay, and I could have kept her blood sugar stable
Julie 48:43
forever, really, see, I have not learned that
Scott Benner 48:47
yet. If she doesn't eat, it's, it's with those with a system, it's, you know, I mean, I would think, if you had control, IQ, if you had Omnipod file, any of them, really, yeah, yeah, fast it is like, that's the other thing. Like, he's gonna have to learn. Like, like, when he's lifting or working out or stuff like that, like, especially if he's more anaerobic, like, just do it in the morning fast, like, get up and work out first without any insulin
Julie 49:11
on board. Yeah, he does do that, right? Yeah, yeah. Think about
Scott Benner 49:15
that in the setting of, like, you know, you head off to the hospital seven in the morning. He isn't eating overnight, we got her nice and stable. Yeah, we rolled in there with a blood sugar of like, I think I set her, you know what I did? I set her target higher in the morning, and then I ended up wishing I didn't do it really, yeah, so I think she came out of the surgery at like, 130 or something like that, and I put her target right back again, okay? And tried to get her done. Now, it was scary, because she couldn't really swallow anything. So it was very careful about it, not to make her low, right? But then it's like, you know, the hours went on, I started seeing the, you know, the pattern, and we, we went back to pretty standard, yeah, the worst part about that, I thought you were asking, because. The worst part about it is having that done as an adult is incredibly
Julie 50:03
painful. Oh, that's true. Yeah, that's what I thought you were asking about the diabetes. I just worry about anything in the hospital because, I mean, I never knew that when you're sick, your your insulin needs can triple, like what
Scott Benner 50:17
to make you feel better. Arden had to have dental work when she was a baby, like a baby a little kid, we had to go to the hospital for it. Oh my gosh, the dad just wouldn't put her under in the office.
Julie 50:29
Honestly, I don't blame him, yeah,
Speaker 1 50:31
and we didn't know what we were doing back then. And none of these, like, you know, assisted systems work or existed, yeah, yeah. Back then, I was like, Oh, this is gonna kill her, for sure. Yeah. Sure. Yeah. I thought everything
Julie 50:44
bad. Year I was diagnosed, and then I get a call. My daughter was at University of Tennessee. She was in a hit and run accident. Was hit by a car. Oh, my God. And then in the ER, they found thyroid cancer. Wait, yeah, what? Yeah,
Scott Benner 51:01
yeah, crazy. Oh, actually, I thought the crazy part was that somebody hit her with a car in that orange shirt I knew she was wearing because that
Julie 51:08
thing was an orange at noon on a Monday. Yeah? And it
Scott Benner 51:10
didn't help it, yeah. I think the saddest thing you just told me is that I can send my kid to college dressed like a traffic cone, and they still might get hit by a car. That'll scare people more than anything. They're like, Oh God, we can't protect against anything. So wait a minute. Sea of orange, she got hit by a car and they found thyroid cancer.
Julie 51:28
Run, tell me, never, never saw the person. I got the calm in Pennsylvania, so I don't even remember that day. So, you know, Kyle's kind of not newly diabetic, but new enough. No, I didn't want to leave. You know, I got you and I go down there. Never found the person. She's got, I don't know, like, 30 stitches on her face, knocked cut off her tooth, broken fingers, tooth, well, it was like, cut, yeah, like, cut in half. So, and of course, that's what she's focused on, right like, and then we're down there dealing with her injuries, which honestly, I can't believe she I was just feeling grateful she wasn't paralyzed, but yeah, she was hit. Then they find a mass on her thyroid, so we bring her home, find out it's cancer, then we have her thyroid remove, and had found it had already spread. And then we remove those lymph nodes, we do a follow up. Three months later, there's new spots, so now we're doing the radiation and going through all that. Our dog died. My dad had open hearts like it was a year from hell.
Scott Benner 52:37
God, that's so serious. My I had a stupid question all lined up. I'm not going to ask you now. Oh, you can ask me a dumb question. I might make me laugh. Do you ever find yourself singing that Arrested Development song Tennessee all the time? I would too, like every time somebody said Tennessee, my brain would go tennis
Julie 52:54
all the time. That was such a summer hit when I was in high school. I know, right.
Scott Benner 52:59
That's all it would happen to me. Like, every time you said Tennessee, there's an echo in my head that goes Tennessee. Wait a minute. So your daughter didn't just have like that. You know when people like, oh, thyroid cancer, but they took it out and it's gone. Now, some remain behind, yes, and then repopulate. I'm using the wrong word, but came back again.
Julie 53:19
Yes, it came back again. So now we're in the she's home. Now she went back to school, graduated, moved home, and now we're doing the treatments, the radiation treatment, and then she's just doing online school for a master's degree.
Scott Benner 53:35
And so sorry. Also, did you notice that Pennsylvania does not work in a song at all, not at all. Yeah, terrible. No, really? What's she getting? Her Master's then
Julie 53:45
she's doing it in strategic communication.
Scott Benner 53:49
Oh, I do that with my wife. Yeah,
Julie 53:53
everything I know is from the podcast. Thank you. Every single, every single thing, I'm very glad. I'm
Scott Benner 54:01
glad it's been valuable too. I really am
Julie 54:04
very My favorite was the 10 minute one you posted on Thanksgiving Day.
Scott Benner 54:09
Oh, people love that one, the turkey, the turkey tutorial, yes,
Julie 54:14
that was because no one has time right before Thanksgiving, right? And it was just like a quick little here do this today. And I was like, All right,
Scott Benner 54:25
yeah, it's just something simple, like, I just figured out, like, one day, this is what people seem to struggle with on Thanksgiving. I think it's actually a way to understand every day better. It just, it just focuses you on, like, as Thanksgiving is so fast and furious and so many different types of foods, and more frequency of eating for some people, etc. Like, if you can get through Thanksgiving and not be low and not be high at the end of the day, I think it gives you a ton of, like, motivation to be like, Oh, I could do this, like, on a normal
Julie 54:52
Yeah, for sure. Definitely, yeah, definitely. So,
Scott Benner 54:56
yeah, I'm glad you like that one. It's a, it's a, it's a popular little. Episode. It's just me talking about, like, it's just me talking through how I dealt with Thanksgiving when Arden
Julie 55:06
was little, yeah, and it was good, because, like, a teen is willing to listen to a 10 minute thing, you know what I mean, yeah, like, you know what I mean? Like, I tried the small sips. We've talked about it, but he kind of this, like, that, typical, like, okay, Mom, you know what I mean, yeah, but I'll play it in the car, like, if I'm in the car with him, but if he does on his own, he would probably never admit it to me, because it was my idea.
Scott Benner 55:32
Oh, we're at that part still. Yeah, oh yeah. Goes away. Yeah.
Julie 55:37
He's if he, if it's if he's in control, he he's good, but it can't be, moms, I make him sound bad. He's sweet. Kid. The next few
Speaker 1 55:45
years, the testosterone is overwhelming. It starts to, like, temper down in their, like, early, mid 20s, the boys, oh, good, okay, yeah, yeah. Then suddenly, like that, like that desire to, like, you know, conquer everything, kind of like lessons a little bit. Okay, gotcha. It goes away slowly over time. Your husband's probably just starting to turn into a human being about now, right? You know, Joy. I get it. I just started being an adult, like, five years ago.
Julie 56:14
Same, I feel like, Yeah, same,
Scott Benner 56:17
yeah, exactly. Anyway, what else you got? Anything else for me?
Julie 56:21
No, that's it. Just thank you so much for making me laugh when I need to, but also teaching me, you know, and I love hearing like how other people do things and that my story is not the worst, nor the best. And you just now. I mean, it made me realize that there's so many people living with this, yeah, you're gonna be okay community, you're gonna be a nice community.
Speaker 1 56:48
It's all gonna be okay. It really, it really is. It's tough. I mean, you got some other autoimmune layered over top of it, yeah, which is obviously challenging, right? Listen, I'm not telling you anything, you know, again, I'm not a doctor. It's not medical advice, etc and so on. But I would really, I mean, you're in healthcare, right? Just get somebody to prescribe the thyroid medication to you. Oh, you're talking about me. Oh, yeah, I'm worried about you. Oh,
Julie 57:18
my goodness, yeah,
Scott Benner 57:20
no, no, because you don't understand if that's really a problem for you, you're gonna have a renaissance. Okay, you know what I mean?
Julie 57:27
I'll ask my Endo, just get a new one. Just get a friend
Scott Benner 57:32
at the hospital who can write you or like, yeah, just a friend. What are we talking about? Like, what good is it being you? If this isn't how this can work, you know? I mean, like, you don't need to be spending the next six, eight months talking some endocrinologist and the listening to a podcast about, like, you know, I think if you medicated my TSH and got it under two that my symptoms might go away and I feel more arrested, and the doctor go, that looks normal. And trust me, most doctors are not going to, like, they're not going to agree to that. Yeah, yeah. You must have a friend. Do you not have
Julie 58:02
a friend? Oh, I have a lot of friends.
Scott Benner 58:05
Let's get you tell the friend how much you weigh, and then they write you a script, and then you try it, and then you feel better. Then you go to your Endo, and you go, Hey, funny story. Guess what? I didn't think you were gonna help me with this, so I went over and I got a friend of mine to send a script, and all of my symptoms are gone, and I haven't had a breakout in a while, and I'm thinking of going off this biologic and blah, blah, blah, or whatever ends up happening for Emma. Maybe the biologic still necessary. I don't know what's gonna happen to you, by the way, right? Outline, maybe you'll have a nice outcome, and you could just go like, hey, so Rock on, right. Let's keep doing
Julie 58:40
this, yeah, my PCP might actually, yeah. I hate it when they
Scott Benner 58:45
started calling them PCPs. I just want to say that, really, PCP is a drug. I grew up in the Oh, it is a drug, yeah. Like, why would you start like, what's next? Like, is my nurse practitioner gonna be crack one day? Like, what's next? I mean, for the love of God, you couldn't find a better acronym than PCP. I mean, why don't we just call them Angel Dust and see what happens? I, I, I've never, I'm never, ever gonna be well, yeah, because am I wrong? I'm not wrong, right? I never thought of it. Why would you not think of that? That should be the first thing you think of, you should use it say, why did they just name doctors after Angel Dust? What? By the way, what is Angel Dust? I
Julie 59:27
don't know that one I'm not familiar with, not that I'm familiar with these.
Scott Benner 59:31
No, hold on a second. What drug angel is it? I don't know. I'm just I grew up, I just listened to the radio. I heard people say things I would think, is it cocaine? Because you can get coke with angel dust on it. I know for sure, because I remember from you know for sure from the 80s movies. Hold on a second. Let's see what a disassociative anesthetic developed in the 50s for surgery, but abandoned in humans because it caused hallucinations after. Agitation and psychosis. Street names, Angel Dust, ozone, rocket fuel, embalming fluid, wet and Sherm. How to use it, smoked, often with marijuana or tobacco, snorted, smaller, injected fluid. It's one of the street names. Interesting. Short term by the way, kids don't do drugs. Short term hallucinations, feelings of detachment, distorted sense of strength and invulnerability, agitation, paranoia, dangerous effects, violent behavior, seizures, coma. PCP is illegal and considered a schedule two controlled substance in the US. Wait, is it? Is it like bath salts?
Julie 1:00:35
I'm trying to figure out I've never understood bath salts. Really. Remember that
Scott Benner 1:00:40
time they tried to tell us that basal for making people in dishonor into zombies. Yeah, they get lumped together. And basal are very different drugs. Okay, so what legal drug is PCP most like
Julie 1:00:55
internet baby. I know. Thank
Scott Benner 1:00:58
God. I mean, what do I gotta? I gotta learn everything, and then what? And I got to remember it. How's that
Julie 1:01:03
possibly going to happen? I can't remember anything. Yeah, age four. Maybe that's my thyroid. I thought it was menopause.
Speaker 1 1:01:10
See PCP. Closest legal drug in terms of how it acts is ketamine. Oh, yeah. So there you go. It's not meth. I've never done any hard drive. It's probably pretty obvious that people have they're listening right now is like, why? He doesn't understand any of
Julie 1:01:27
this at all. I know someone's gonna write to you and be like, let me just fix this. Oh, by the way, those people come
Scott Benner 1:01:31
on too, and you're invited to, you want to come on and explain your PCP habit to me. I'm as long as you have diabetes, I'm very willing to hear about it all into it. Yeah, it's not meth either?
Julie 1:01:40
Yeah, it's not meth. Okay? I don't know. No, okay.
Speaker 1 1:01:45
I mean, who knows? I just hear these things on cop shows, so I don't really know. Also, everything I know about medicine is from, is from, like, er, and like, oh, Gray's Anatomy, for sure. What do you mean? Are you kidding me? I've been right about
Julie 1:01:57
things, because you got to watch the pit. That one's pretty accurate. I watched the pit. What am I well, I don't know if it's one of your 87 streaming things that we now have to do every
Speaker 1 1:02:07
time, every time. I can't even tell you how Arden makes fun of Kelly, because Kelly loved the pit, and I enjoyed it very much, and watched it with her. I think it was on Sunday nights. We actually watched it first, like every time it came out. But eventually Arden is like, I think mom likes that guy, not this show, no. And then he popped up in the book. Are they watching some award show? He won an award the other night. Okay, he popped up on the Emmys. And Arden's like, oh, Mom's getting uncomfortable.
Julie 1:02:38
I just like it because it's actually accurate, yeah.
Scott Benner 1:02:41
Actually, I very much enjoyed it. I thought it was awesome.
Julie 1:02:44
Yeah, okay, I need to have someone with type one listen.
Scott Benner 1:02:47
They'll get they stay on long enough they'll get to everything eventually. You were terrific joy. I appreciate you being so honest and forthright and and telling the story for us. So thank you very much.
Julie 1:02:57
Thanks for having me. It was nice to chat with you.
Scott Benner 1:03:00
Of course, I was my pleasure. Hold on one second for me. Okay,
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