#1625 Three the Hard Way
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Linda shares her family’s journey—one daughter with type 1, another antibody positive, and the oldest with Crohn’s—navigating diagnosis, anxiety, and Trial Net.
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Scott Benner 0:00
Friends, we're all back together for the next episode of The Juicebox podcast. Welcome.
Linda 0:15
My name is Linda, and I have three daughters. My youngest is my type one. My middle is TWO, antibody positive and in trial. Net. If
Scott Benner 0:26
this is your first time listening to the Juicebox podcast, and you'd like to hear more, download Apple podcasts or Spotify, really, any audio app at all, look for the Juicebox podcast and follow or subscribe. We put out new content every day that you'll enjoy. Want to learn more about your diabetes management. Go to Juicebox podcast.com up in the menu and look for bold Beginnings The Diabetes Pro Tip series and much more. This podcast is full of collections and series of information that will help you to live better with insulin. Please don't forget that nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. This episode of The Juicebox podcast is sponsored by Medtronic diabetes and their mini med 780 G system designed to help ease the burden of diabetes management, imagine fewer worries about Miss boluses or miscalculated carbs thanks to meal detection technology and automatic correction doses. Learn more and get started today at Medtronic diabetes.com/juicebox this episode of The Juicebox podcast is sponsored by the twist a ID system, powered by tide pool, that features the twist loop algorithm, which you can target to a glucose level as low as 87 Learn more at twist.com/juicebox that's twist with two eyes.com/juicebox. Get precision insulin delivery with a target range that you choose at twist.com/juicebox. That's t, w, i, i, s, t.com/juicebox, this episode of The Juicebox podcast is sponsored by the contour next gen blood glucose meter. Learn more and get started today at contour, next.com/juicebox
Linda 2:24
My name is Linda, and I have three daughters. My youngest is my type one. My middle is TWO, antibody positive and in trial
Scott Benner 2:33
net, and the oldest one is just keeping their head down. She's got Crohn's disease. Nobody gets out clean, huh? Nope, none of them. That wasn't a joke about Crohn's. That was just, I meant about autoimmune in general. Well, three girls, yes. How old are they?
Linda 2:51
My oldest is 22 and then 20 and 17. Wow.
Scott Benner 2:56
What is it can I just before we get to the other stuff? What's it like having three daughters that close in age.
Linda 3:02
It's exhausting, but fun,
Scott Benner 3:05
okay? Because the fun parts are fun and the exhausting parts are exhausting, right?
Linda 3:08
Yeah, that's right, they're great. They get along. They do really
Unknown Speaker 3:12
well. That's awesome. Are you married?
Linda 3:15
I am okay. My husband and I have been married for 24 years. 24
Scott Benner 3:19
years. Has he ever watched them do something crazy and turn to you and looked at you like, you know, this is like, they get that from you, right?
Linda 3:26
No, he's usually just watching them and very thankful that he has daughters he never really wanted, or felt like he needed a son, really. Oh, yeah. Well, then I get to deal with all this stuff. Oh, I see he's, he's a little more hands off.
Scott Benner 3:40
Oh, he's like, I don't know about this girl, stuff you handle that
Linda 3:43
That's right. Oh,
Scott Benner 3:44
it is out. Yes, is there autoimmune on his side of the family? Your side of the family anywhere?
Linda 3:51
Yeah, he has thyroid disorder, hypothyroidism. He's never really been tested for antibodies, but his mom also has thyroid issues.
Scott Benner 4:02
Okay, we're not sure what Hashimotos is. What you're saying, No, we do not know for sure. Yeah, anybody else in the
Linda 4:09
family my mom has right now? Oh,
Scott Benner 4:13
there it is. There it is. A little on both sides, right? And, yeah. And just like that, who was diagnosed first, the type one, the type one, and how?
Linda 4:21
How long ago she was diagnosed? Four years ago,
Scott Benner 4:24
four years ago. So she was like, 13. She was 13. Did I keep all those numbers in my head? 2220, and 17? Wow. I might be good at this before I'm done. I mean, I'm not there yet. I'm having a good feeling like I'm cresting the crest in the hill. Wow, that's something. So she's 13, she gets diagnosed with type one. How does it present like? How do you even know she needs a doctor?
Linda 4:49
She hadn't been feeling well, so she was two weeks before eighth grade when she was diagnosed. And I would say, looking back over seventh grade, she was just having. More days that she just wasn't feeling well, nothing major, but like upset stomachs and that kind of thing. Yeah, through the summer, she started having episodes, particularly like when she was showering, where would she she would feel dizzy and like she was going to pass out. So at her well visit, which was like two weeks before her actual diagnosis. We talked about it, and they basically just test her her blood pressure, yeah, and I think they tested her hemoglobin and said she's got orthostatic hypotension,
Scott Benner 5:37
okay? And, and did they not find that odd for a 13 year old,
Linda 5:41
apparently not. The nurse wasn't super concerned. She just said, your blood pressure drops when you're starting to feel weird. Drink a Gatorade, it'll help you feel
Scott Benner 5:50
better. But in actuality, she was approaching DKA, Yep, yeah. So close. We were so close to figuring it out. Well, listen, it's, I mean, Linda, you must know too, like it would, it would be a stretch for somebody to off of that to say, well, we should check your blood sugar. You know that's,
Linda 6:08
yeah, I know, yeah. And she wasn't losing weight yet. That's what like after we discharged from the hospital, they brought us right back in, and the doctor said she had not had significant weight loss. That's why we didn't look for it, yeah.
Scott Benner 6:22
Well, what happened next, though, I mean, and how much Gator did she drink? Needlessly? She
Linda 6:28
was probably drinking one or two a day,
Scott Benner 6:31
which frequently she didn't feel well,
Linda 6:34
yeah, exactly, gotcha. So she she just over the next two weeks, she just started getting more and more, you could tell something was wrong, she started to lose weight, although I wasn't, we weren't weighing her to know that for sure, but kind of at the end, you could see that she lost a good amount of weight. Yeah, yeah. Two weeks later, it's a weekend, it's a Sunday, I know she's not feeling well. I can see it the night before, actually, she'd started to feel better. She hadn't been eating much, starting to drink lots of water, and she started to feel better. Was on a Saturday, and went with her sisters to 711 and got a Slurpee.
Scott Benner 7:08
I've been at a Slurpee in forever, yeah.
Linda 7:12
Well, they're good, yeah, but she came home and threw up, and then my husband said she's got diabetes. And I said, no, wait, like there's, there's no way. Why would she have diabetes,
Scott Benner 7:24
Mister, I'm not involved. Knew that was diabetes. How do you figure that out?
Linda 7:27
Figured I think he thought, well, she just drank all that sugar, and her body needed to get rid of it, right? Okay, so that's his thinking. And I, I said, there's no diabetes in our family. Why would she have diabetes?
Scott Benner 7:39
You didn't say I should have married a smarter man. That's probably, is that what you were thinking when he said that? You're like, oh, dummies. Finally got something to say, and that's what he came up with. I really, I've been married a long time. I really feel like, I know how you girls think sometimes so you're like, my mom told me not to marry him. He ends up being right by mistake. A little he was right, but once he says that, what do you end up? How do you manage that? Like, how do you how do you hide your disdain for him, and then move forward?
Linda 8:11
I just, I just said, No. I said, There's no way she has diabetes, she's got the flu or something. I know something's going on, but so the next day, I know, okay, we've got to go back to the doctor plane to call Monday morning, and it was later in the evening, like five o'clock, and I just looked at her, I said, Do you want to go now? And she said, Yes, okay, so
Scott Benner 8:33
yeah, like she went to it. We don't want to wait any she knew she couldn't wait any longer. Yes, she knew,
Linda 8:39
right? She knew she was feeling so bad and something was wrong. Yeah, clearly, gotcha.
Scott Benner 8:43
Did your husband go with you? I'd hate for you if he was there when, when you found out he was right? No, no, I went on my own with her. Good, good, good, smart. What was worse, finding out your daughter had diabetes, that your husband was right about something, and you were
Linda 8:57
gonna have to tell him definitely finding out she had diabetes. Yeah, no, I know. So you went to urgent care, then, well, we went to urgent care, but it was closed. Okay, so then we went to the emergency room. Gotcha. Gotcha. They
Speaker 1 9:10
tested her blood sugar right away based on just how she looked, yeah,
Linda 9:15
and the fact I kind of gave the same story. She'd been having all this dizziness. This is what they diagnosed her with. She's getting more sick. Talked about how she threw out the night before and her blood sugar was 410,
Scott Benner 9:28
wow. Hey, did you mention to the ER people that, er people, I know there's a better way to say that, but did you mention to them that your husband thought she had diabetes? No, I did not. No, okay. I was just wondering if you led them and no, okay, well, that's got me. It's cool. They figured it out right away. She was 410 that's not like crazy, right? Was she in DK,
Linda 9:49
though she was, like, just kind of starting the process. She had large ketones. She like, she didn't have any organ damage going on at all. But. Yeah, she was diagnosed as being a DKA, yeah.
Scott Benner 10:03
Wow. Did you hear that story on the podcast recently where the the kid ended up with like, like, vomiting up, like, dead tissue from DK, no, I didn't hear that one. Don't listen that one. I don't make it. Was that first time somebody said that to me. So, okay, so not, not too terrible then. I mean, other than the diabetes and being in the ER and everything, but like, could have been worse. How long is she there? What do they tell you? What's the teaching like, what do you go home? Understanding.
Linda 10:31
So we had to transfer to a different hospital, because the first one we went to, apparently they don't do pediatric endocrinology, okay? So we had to go to the bigger hospital. So we were there. Went in on a Sunday. We went home on Wednesday, the first 24 hours was really still in the ER, the whole time. Okay, once we got up to the room, yeah, they started. We learned how to do injections, how to calculate carbs, all the basic stuff, what to do, about ketones, what to do, and she's low.
Scott Benner 11:04
Yeah, okay, so just basic, like, top level stuff, yes, where would you say you're at now, four years later, with the understanding, like, How's she managing today? How's she doing?
Linda 11:13
I think our understanding is much better. She does pretty well. She's got a lot of anxiety that impacts her management. So there are times like at school, she'll skip dosing at lunch and things like that. But she's doing better. I mean, each year she's gotten better. How about that?
Scott Benner 11:33
Do other people in the family have anxiety? Did she have it before the diabetes?
Linda 11:37
She had anxiety before diabetes, and yes, there is anxiety and other in her oldest
Scott Benner 11:43
sister. How about the family line, too? I tend to
Linda 11:47
have some anxiety. Gotcha. Yeah. Are we Irish? I have a very tiny amount of Irish in me,
Scott Benner 11:55
just a tiny bit, yeah. What is your genre? What background are you?
Linda 11:59
I'm half German, a lot of English, and that little bit of Irish,
Scott Benner 12:03
okay, I'm not finding common words today. I said hospital people, and I asked about your genre for your background,
Linda 12:11
but I understood what you meant, at
Scott Benner 12:14
least it's coming across that way. How does the anxiety impact the management she
Linda 12:20
worries a lot about going low and then not being well, maybe needing assistance. But also she worries a lot about alarms going off, like when she's in school. Oh,
Scott Benner 12:32
she doesn't want people to hear the it's not even I would imagine. She doesn't even care if they know she has diabetes. She just doesn't want the beeping to bother people. She doesn't, yeah,
Linda 12:39
she doesn't Yeah, she doesn't want the noise. She doesn't really love people knowing she has diabetes, so she doesn't tell everybody. She's not very open about it. She doesn't want the attention on her. It's like all social anxiety stuff. Are we
Unknown Speaker 12:52
doing anything for the anxiety?
Scott Benner 12:54
Yes. What do we do? Working for she's in therapy. It has been for a while. Does it help? Not as much as we'd like it to. Is it more like the anxiety doesn't get better, but her like coping skills for having anxiety are getting better?
Linda 13:11
Yes, slowly, she's doing better. So she's told a few more friends about having diabetes, okay, which then helps, because she doesn't have to worry about them finding out.
Scott Benner 13:23
Ah, gotcha. So you keep it from them. And then there's anxiety about, I'm keeping a secret. Somebody's gonna find out my secret. Yeah, no, I didn't know that's interesting. I didn't think of it that way. But as far as it just like trying to give people like, like expectations, like, you don't go to therapy and somebody talks to you for a while and you're just like, oh, I don't have anxiety anymore. This is awesome.
Unknown Speaker 13:47
Not like that, right? Yeah, no.
Linda 13:50
Wish it was that simple, yeah.
Scott Benner 13:52
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Linda 16:28
Yes, I definitely do think that's a possibility, and it's something that we've talked a lot about and more. I mean, just you know how diet can have a big impact, yeah, on your mental health. So yes, I do think that there's very possibly a connection.
Scott Benner 16:46
I keep wondering if we're gonna because of glps being used, if people's inflammation is gonna get lowered and you're gonna start hearing like, side you know, like side effects, like, oh, I used to be much more anxious than I am now, or something like that. Like, I keep, I keep thinking like, maybe that's the thing we're gonna hear in coming years because of the population. I mean, it took me some time to interview enough people to think out loud like, Wow, a lot of these people talk about anxiety, like a lot of them, you know, like, I really think that if I had a podcast that where we were just talking about, I don't know, painting color choices for your interior but I really am talking around words interior design. Like, that's it. It's interesting. My brain's doing that today. If I had an interior design podcast, and for some reason, asked everybody if they were anxious, I don't think as many people would have answered in the affirmative as when I'm talking to a bunch of people who are somehow related to or have type one diabetes, like, I don't know, like it just like. So anyway, thinking that that population may have a greater propensity for whatever reason, the more things that they do that, you know, we can kind of look back at and go, Hey, like a lot of type one started using glps in the 2023 2425 like, and hopefully they'll go to maybe a daily pill sooner than later that's as effective as the the weekly injections are. Like, maybe we'll start hearing back from people like, hey, you know, I used to have this going on and doesn't seem as bad anymore, or whatever. I don't know, but that would be fantastic. Yeah, right. Like, I mean, I've had like, benefits from GLP that nobody like, when I took it, like, originally, they were like, Here, take this. It'll, you'll lose weight. I was like, Oh, cool. I definitely needed to lose weight, so that'll be great. And then all of a sudden I was like, wow, my digestion is better, which, you know, makes my elimination better. And then that fixes a lot of, like, you know, a lot of problems that you have in your life. And then all of a sudden I was like, Oh, my God, I don't get like, low iron anymore. And like, you know, like, you start seeing like, these benefits, like piling up, or you see all the women online who are like, Oh, I've had PCOS my whole life. I couldn't get pregnant. All taken to GLP. I'm pregnant now, that kind of stuff. So, yeah, yeah, no, it's pretty it's pretty interesting. There is a great episode here where, I mean, and this is a stretch, I'm certainly not saying like, you should all start taking a GLP if you're bipolar. But there's an episode on here where the mom, a mom, comes on for and talks about a child who has type one and is bipolar, and they, you know, we're doing a lot for the bipolar disorder. And they, they made some really good progress with, you know, some understood therapies, but a lot of it still remained. And then the kids started taking the GLP and, like, she's, like, a lot of the problems she was having just disappeared. And I was like, that's crazy. Like, and Dick kid was really having trouble. Like, they had to, if I'm not mistaken, they had to, like, somehow secure the second floor windows, because the girl would have ideas of just, like, jumping out the window, you know, like, so who knows? Like, I don't know anyway, it's pretty far away from your your story, but that's
Linda 19:44
right, I would love to see more research. I know they're doing some with type ones. It's very interesting the effects that might have on insulin resistance,
Scott Benner 19:52
and, oh, it definitely does that. Like, if you're a type one who has insulin resistance, I think a GLP helps you immeasurably. Arden. And have been in a situation where, for like, her needle fears, like she hadn't taken her GLP in a while, so we adjusted her insulin out, you know, to manage things. But still, like spikes at meals, much more, you know, with the same amount of food, same kind of food, much worse, spikes, harder to bring back down a 1c, starts to rise. Also, you don't realize that when you know she started using the GLP, like, pre bolusing became less and less important. And so then you suddenly aren't using it anymore. But you don't remember, like, oh yeah, I should Bolus 20 minutes before I eat this, because on the GLP, you kind of didn't have to all of a sudden. And and, like, all these little things together. And then she went back on it Friday this week. So one, two, like, four days ago, okay? And I gave her not even a full dose, and today I had to adjust back her basal and her insulin sensitivity. So I had to take insulin. Yeah, so
Linda 21:01
yes, that's all very interesting. Yeah,
Scott Benner 21:02
no, it really is okay. So poor kid gets type one at what point? What happens next? Do you find out that the middle child has antibodies, or do you find out that the oldest child has Crohn's? Today's episode is sponsored by Medtronic diabetes, who is making life with diabetes easier with the MiniMed 780 G system, the MiniMed 780 G automated insulin delivery system anticipates, adjusts and corrects every five minutes. Real world results show people achieving up to an 80% time and range with recommended settings, without increasing lows. But of course, Individual results may vary. The 780 G works around the clock, so you can focus on what matters. Have you heard about Medtronic extended infusion set? It's the first and only infusion set labeled for up to a seven day wear. This feature is repeatedly asked for, and Medtronic has delivered. 97% of people using the 780 G reported that they could manage their diabetes without major disruptions of sleep. They felt more free to eat what they wanted, and they felt less stress with fewer alarms and alerts you can't beat that. Learn more about how you can spend less time and effort managing your diabetes by visiting Medtronic diabetes.com/juicebox
Linda 22:22
the antibodies came next. So after diagnosis, we got information about trial net, and I just kind of dove in, because everything that happened with her, we missed the diagnosis. I didn't want that to happen again. Okay? I thought, if somebody else is going to get it, I want to be prepared, right, and know that it's a possibility, yeah, and then be watching more closely. So it was probably she was diagnosed in August, and then probably in September. We did the trial net. We did the finger stick, which is not as easy to do as you think it
Scott Benner 22:55
should be, the at home thing. Yeah, yeah. I've heard people tell stories. So
Linda 23:00
we did the finger stick, and the my oldest came back completely negative, and then the middle was get 65 positive. So they think how long they don't really know. So she came back positive. Then we had to go do the blood draw so they could test for more antibodies. And she was still just get 65 positive at that point. So this is 2021 she was tested annually after that, and last year she came back with a second antibody.
Scott Benner 23:30
Okay, so 2021, till 2024 just one and now a second now, yes. So one antibody, what do they tell you the likelihood of type one is like, how do they percentage wise, talk to you about it? They said it's
Linda 23:47
20% chance. Well, the way they phrase it to me is, she's 80% not likely to develop type one.
Scott Benner 23:53
Oh, what a nice way to say that is she now 60% unlikely to develop type one.
Linda 23:59
Yeah, they've not given me another percentage. But
Scott Benner 24:01
now they're like, oh, maybe you should start saving your extra supplies now, right? Does two indicate that it's probably coming? Yes, yes,
Linda 24:11
and her second one is the insulin antibody.
Unknown Speaker 24:14
Oh, I
Scott Benner 24:15
see, yeah. So the ones that that you're indicate for, they mean a little more than just, like, you have one or two or something like that, right? Yeah, right. So what do you do? Does she on, like, a like, do you put her on a CGM, or do you just test your blood sugar once in a while? How do you
Linda 24:32
handle it currently? So through trial net, she's doing our oral glucose tolerance testing every six months. So she's had that done twice. She actually goes again next week. They re check her antibodies every time as well. So she spends stable her a 1c was 5.4 both times.
Scott Benner 24:51
That's still higher, though, than what you would expect, right?
Linda 24:55
It is, yeah, higher than it probably should be. There was no increase in. It between the two six in the six month time period.
Scott Benner 25:03
Gotcha, and that's positive, yes, like a pot, yeah? Not positive. Like, positive anybody, yeah, it's good thing, right? Well, I have two questions, really. My first one's about you, if you're already an anxious person, your anxiety probably led you to trial net, and then you found out she had an antibody. So then you your anxiety was rewarded for being anxious. Do you see what I'm saying? Like, it was that kind of bad for you, that that went that way. Because now, do you have that underlying feeling of, like, see, it's not anxiety. I'm right.
Linda 25:32
No, not really, okay. Like, when we got the first one back, I guess maybe I was a little bit more anxious then, but then the second one, I was just sad. Okay, yeah, they I cried when I got the phone call,
Scott Benner 25:45
because, you know what it means now,
Unknown Speaker 25:47
yeah, yeah.
Linda 25:48
Because now it went from, Hey, she's 80% not likely to get it to Yeah, you're probably going down this path. We just don't know when.
Scott Benner 25:57
And you know what Diabetes means too, yeah. Like, if it was just, if it was the first time, you might be like, Okay, you still don't exactly know. Can I ask you when you think of that? When you think of like, my daughter is going to get diabetes at some point, probably, what does that mean to you? Like, what do you think is going to happen to her? Like, big picture is it, are you worried about her feelings about her health, about her like, you know what I mean, like, what pops to mind when your mom worry jumps in
Linda 26:26
there. Yes. I mean, I worry about her being anxious about it. She's really not an anxious person. So she's handled it pretty well. I mean, I think about now, okay, at some point this is going to happen. She's 20, right? So she's going to be a full adult and on her own, likely. So learning how to manage without me there to help will be different, yeah? And want to be able that I can still support her through that,
Scott Benner 26:53
yeah, yeah. Plus they're like, you know, you know, when you're that age, not like, really an adult, you're just like, an adult on paper, yeah? And then the very first adulty thing she's gonna have to do is, you're worried, is, like, learn how to take care of diabetes, right? Which you now know what that means. And I'm assuming you didn't find it all that easy.
Linda 27:15
No, it's not. And it's just she'll be able to learn it and do it. I don't have any doubt about that, but it's, it's exhausting, yeah, so, you know, I don't want her to have to have that in her life. But if that's what it is, that's what it is. I mean, part of doing this, my goal in doing this, is now, like trial, not, not just does the monitoring, but when you hit a certain point, like when you start to be disc glycemic, they have other studies that are going on in prevention. So how long can we delay it now that we know that it's there?
Scott Benner 27:49
Okay, all right, so you're gonna like, and your daughter's up for that? Yep. Okay. Are you talking about tz old she and I
Linda 27:56
have talked about it a little bit. I have mixed feelings about it. What are your mixed feelings? Well, it's very expensive, I know, but that doesn't mean our insurance wouldn't cover it. Potentially it would. I know that it's a it's not an easy process to go through, right? It's intense, but again, if you can delay it, it's May worth probably worth it.
Scott Benner 28:18
I think what tz old is like 13 I'm guess. I think it's 13 treatments every day, like you get an infusion every day for 13 days or something, it might be 14 or something. Don't don't hold me to it. Often, you have to travel somewhere to get it accomplished right now, because there's, it can't be done everywhere. So I think I've interviewed a woman who, like, spent two weeks in a hotel with her kid, and they did it. Yeah, so for that effort, how much time do you want back? Like, if you got to decide how much you got back, you know what I mean, like, is it if they did that to her and it pushed her diabetes off nine months, would you be like, uh, what a waste of time. Like, the enemy. Like, what number makes it feel valuable to
Linda 28:55
you? I mean, I'd probably want five years, okay, at least.
Scott Benner 29:00
And that would make it feel like, okay, this was worth it, right? Gotcha, but they don't have any there's no data or promises that are made. Yeah, no, there's not Yeah. And you talked about that with your daughter, and she's like, it's cool. I'd be up for trying. I think she
Linda 29:15
would do it if that was the best option. And I don't know for sure what else triland is doing, but they did talk to us about that they do have ongoing trials or other stuff. Indiana University, okay, that are prevention based. So I would want to find out what those are and what the techniques are that they're doing, and try to decide side effects and all that stuff.
Scott Benner 29:37
Yeah. Okay, interesting. And when you guys sit and talk about, I mean, she obviously sees her sister with type one. She kind of has a vibe for it, like, has she come to you and expressed any feelings?
Linda 29:50
Her biggest concern is she has ADHD. So her biggest concern is just the managing the day. Daily regimen, right? Everything she needs to do in a day, and not forgetting, not getting distracted, so being able to manage the two things at once.
Scott Benner 30:09
Huh? She's ADHD, you didn't mention that. What else did you not mention?
Linda 30:14
Think that's it. Oh, my oldest is. ADHD,
Unknown Speaker 30:16
also, do you?
Scott Benner 30:19
No, okay, you just have the anxiety piece, yeah? Medication for you. I do not know. Have you thought that you should ever or No,
Linda 30:29
many, many years ago, I did some antidepressants for a while that were effective, but I didn't want to be on it forever. Yeah? So
Scott Benner 30:38
how effective? Like, what did they do for you?
Linda 30:41
Well, I was, I mean, at that time period, I was having more depression issues, so it was more like you're in a fog, right? So the antidepressant just helped, kind of, I feel like it woke me up so that I could do what I needed to do to get through
Scott Benner 30:59
that time period. How long did you take it for? I think about a year and a half, pre or post, kids, pre, kids, pre kids. Were you married then,
Linda 31:10
no, I actually met my husband during all of
Unknown Speaker 31:14
that. Oh,
Scott Benner 31:16
you met him during while you were taking the medication. Yeah, I gotcha, yeah. Have you felt like that again? Have you felt that fog again since then?
Linda 31:24
Yeah, I mean, I go through some time periods where I'm a little bit more depressed than others. I manage. I'm okay, yeah.
Scott Benner 31:32
How do you manage crack Okay,
Linda 31:35
no, what do you do? Oh, no, just, I mean, a lot of it, honestly, it's just, I just keep going. I'm busy. But, I mean, I love to read. That's something I do that helps me lots of prayer. So
Scott Benner 31:48
seriously, distract yourself. Kind of turn towards, turn towards religion, that kind of thing. Yeah, okay, all right, any of the kids have that
Linda 31:56
now they're all more on the well, they're more on the anxious
Scott Benner 32:00
side thing, more on the anxious, like, you know, when you said, when you said, more on the I thought, like, for a second, I thought you said, I thought you said, no, they're morons. And I was like, what? I was like, This is so inappropriate, I swear, for like a split second I was like, what does this lady do? She seems so reasonable, and now she's just gonna make a dumb joke in the middle of a depression conversation. But no, that's not what you were doing. So they're just more anxious. Is your husband? Is your husband anxious? Oh, no, not at all, not at all. He's just standing off this light going, like, I don't know what's happening. I'm just trying to live.
Linda 32:30
Yeah, exactly.
Scott Benner 32:32
Okay. I want to hear about the Crohn's. Like, when do you figure that out? Is that more recent
Linda 32:38
she was diagnosed a year ago, like, June 2024, what's living like that? Like,
Scott Benner 32:46
horrible, yeah, what is, what is some of the markers of it?
Linda 32:50
So for her again, really, I think we can go back a few years, though, because when she graduated high school, started college, she started having pretty significant anemia. Okay? I think that that was really the start of the Crohn's, because that's one of the hallmarks I see. And then it's like early 2024 she started having diarrhea and stomach problems. She lost like 20 pounds over two months, because you don't absorb nutrients correctly with Crohn's, that's one of the problems, right? Can't hold her vitamin D was low, like she was just had all kinds of stuff going on, right?
Scott Benner 33:27
Not absorbing anything, so not getting in her iron, not getting in her vitamins, yep, and losing a bunch of weight, not being able to hold weight even, did she have weight to lose? I'm sorry to ask like that. No, she did not. Okay, so, so off of a, what we would call, like a healthy frame. She lost 20 pounds off of that. Yeah, yeah. What did you notice first? Because I don't imagine, like a kid that ages comes to you right away, and it's like, I'm having diarrhea, like, or maybe they do, I don't
Linda 33:52
know. I know she's she's pretty open with all that stuff with me. So I knew pretty early on. And she was at college as well, which was, which is close to our host. She lived at college, but it was only like 25 minutes away.
Scott Benner 34:06
Did she remark about being extra anxious, nervous, upset about being at school. No, no, no. She didn't have trouble with that. No, she did not okay, okay,
Linda 34:20
but she did go through her college significantly downsized in the last year. It's like she was starting to have her symptoms in February 2024, they made this big announcement that they were basically cutting almost every program, and then she went into what we consider was probably her first flare, because stress can do that as well.
Scott Benner 34:39
Yeah, the stress hitter, yep, the college just was like, hey, guess what? Yeah, I know some of you are here for accounting, but too bad is that? Like, what happened? Yeah, essentially, wow, yes, I once knew a group of boys who played baseball at a school, and the school just announced they weren't gonna baseball anymore.
Linda 34:58
Well, that's essentially what they'd. It's a it's a school, a university, that has two campuses having some financial difficulty. They chose to to basically eliminate almost every program in all athletics at the campus she was on. Oh
Scott Benner 35:14
gosh, yeah, did she play a sport too?
Linda 35:17
No, but she was in marching band. She's a music person, right?
Scott Benner 35:22
And they cut that as well, yeah, well,
Linda 35:25
they cut everything. So this was, like, this last year. She ended up being able to graduate in May, but not with the degree she wanted. Was, like their last year, and then going into this next year, they moved everything. They had a small campus close by as well, where they're doing health professions, but that's open and nothing else. They
Scott Benner 35:45
went from a university to basically like a skill school for one thing, yep, awesome. You want to bad mouth them. Maybe, would you like to say the name of it? No, that's okay, okay, all right. Well, that's very kind of you. If I ever get Arden back on here and I ask her what she thought of the college she went to first, I'm sure she's gonna say some things that are gonna be terrible. So very nicely to hold it to yourself, very upsetting. They don't do it for free, I guess after they screw over your life's work and plans nothing like that, right? It all still costs the same amount of money, yeah, which still cost money. Was she too far along to transfer to go somewhere else? She was
Linda 36:25
in a music education program and was trying to she really had two more years to go, so she was trying to stay there as long as she could, get as many classes as she could, but they kept canceling classes. Okay? So she ended up graduating with a bachelor's in music.
Scott Benner 36:41
I thought you're gonna say she's an actuary, but God no,
Linda 36:45
and now she's going to go back to a different school to do post bachelor's teacher certification. Oh, you get to pay more money. Actually, the state will help pay for this
Scott Benner 36:55
one awesome, because they know you got screwed. Well, they need teachers. Oh, oh, I see, I see. Well, that's nice, but wow, that sucks. Geez, life's already hard enough you're pooping your pants, and this happens on top of it, like, awesome, by the way, is how it would have occurred to me. I'm sure she went to you at one point and said, is anything ever going to go right for me? Right?
Linda 37:17
Yeah. I mean, she definitely had those feelings, yeah. So she's going through all this, it took us. It took us a few months, couple months to really figure out what was going on. We actually looked at type one again. She still had no antibodies. But her, I actually, I put a CGM on her when she started going through all of this, and she was having high blood sugars. But we have learned that Crohn's can impact that as well.
Scott Benner 37:43
Before you knew it was Crohn's, you panicked a little bit about the diabetes, by the way, with good reason, and she had high blood sugars. You must have been distraught when you saw those high blood sugars.
Linda 37:52
Yeah, well, I figured this was it. Yeah, she was, she was going up to like, 200 after some meals, and I also going lower. Like, she was kind of all over the place, unreal. Her primary did a oral glucose tolerance test, which wasn't done correctly, in my mind, but because they did a they did a fasting and then they did a two hour they didn't do anything in between.
Scott Benner 38:15
Okay, so you didn't, did you say anything while it was happening? You're like, Hey, I don't think you're doing this
Linda 38:20
right. Well, I asked what they were going to do, and the lab tech just said, we can only do what the doctor ordered.
Scott Benner 38:25
Are you starting to wonder if anything's ever going to
Linda 38:29
go right, or if people can do it correctly?
Scott Benner 38:32
Yeah, that isn't going to happen. Yeah.
Linda 38:35
So we did see an endo who her primary did re check antibodies for us. So we saw an endo who did say, no, this doesn't look like diabetes. Check some other stuff, like her cortisol. And she had so many tests in that time period, check for celiac, and ended up at gi who actually figured out was Crohn's, because she had multiple she had multiple ER visits from the pain that she was in, yeah, and they did CT scans that found the inflammation.
Scott Benner 39:08
And then what's day to day management look like for that, she
Linda 39:11
drinks MiraLAX every night, just to help make sure she stays regular, because you can have either constipation or diarrhea. She's on like Pepcid. She takes supplements, like she's got her vitamin, vitamin D. We, I think we figured out an iron regime that is helping, but it's not perfect. That's been a very tricky one. She is on a biologic which one so she has she's on interview, okay? And so that's an every eight week infusion, and that has helped
Scott Benner 39:43
tremendously. Yeah, you've noticed a bump in her health from that. Yeah, definitely. What do you think it's doing for
Linda 39:49
it's decreasing all the inflammation. Okay,
Scott Benner 39:53
have you tried getting her an iron infusion instead of the iron tablets?
Linda 39:56
We've talked about a little bit what we're doing right, or what she's doing right? Now she does the pill every other day, and she's doing a liquid then on the off days, because the liquid does absorb better for her. Yeah, that helps. But her ferritin still a little
Scott Benner 40:12
low. How low would you tell me if you knew? Oh, she just had it done. It wasn't it was like 12, yeah, that's really low. Is she tired all the time? Yeah, yes. I'm telling you, try, try the infusion. You take a 12 ferritin to a doctor and say, hey, look, we'd love to, you know, here's her low iron symptoms, lay them out and say, like, you know, I'd love for you to write her a prescription for the an iron infusion. Try it one time, because I've gone through them a number of times, and they are restorative, and maybe once it was up higher, maybe the system you're on would help her stay up. Yeah, because I don't know how to grow from a 12. And if you haven't heard, I think it's in a thyroid episode with Dr Benito. She very strongly believes that a woman of menstruating age, the minimum your ferritin should be is 70.
Linda 41:07
Yeah. Pediatrician had told us once, when she was dealing with anxiety stuff and her anemia and she was anemic, that we should shoot for 75 per ferritin. Yeah, getting other doctors to buy into that has been tough. Just
Scott Benner 41:24
tell them to shoot you. Say, it looks like, you know, like this. You go, you go into, you say, Listen, shut the up. And just do it. Like, what do you
Linda 41:31
care? This is what I want. Yes, like, what do you care?
Scott Benner 41:35
Just try it and see. You know what I mean, because there's a whole generation of women walking around with their ferritin too low, and nobody takes it seriously, and it's terrible. And not just for your daughter because they're Crohn's, but like people who have heavy menstrual cycles all kinds of different things. There's a lot of tired ladies out there who could be helped, and a lot of physicians who just go like, Oh, you look like you're good, you're in range. I got 12 Barton's insane. I almost passed out when my farton was 12, yeah, yeah. I don't know how she's dealing. Is she what they call snippy? No, not usually, not usually, because that's what happened to me. Oh, my fart and got too low. I turn in a little bitch. Like, I complain. I would just, like, I'd be terrible about things. I think you bring my fart and back up, it just completely went away. Now. I'm just the regular level of terrible No, but seriously, like, that's one of the ways it affected me. Also, I'd get lightheaded, cloudy, I'd be exhausted by one, two o'clock in the afternoon, I couldn't get rested. Like she's having those things, I'm telling you, you hit her with one of those infusions, and then her body gets one chance to remake. Because, you know your body remakes blood cells all the time, right? So the next time her body builds new blood cells and is building it with enough iron, ferritin, etc, in her system, everything is going to come with that infusion, those red blood cells are going to carry oxygen better and boom, she's going to just feel better. It's crazy. She'll feel great. Yeah, yeah, do it. Trust me. Make somebody Yes. I will
Linda 43:01
talk to her and have her reach out to her.
Scott Benner 43:05
She's 22 she'll never do it, I know,
Linda 43:07
but she has to do all the interaction. She's done, she's actually done great. She's learned a lot over the last year with dealing with the medical system. Nice, good. I'm glad. Yeah. I mean, it's obvious talking to doctors, yeah,
Scott Benner 43:16
yeah, I actually have to call a doctor for Arden when you and I get done, because Arden doesn't have a voice. She just had her tonsils out. Okay, tomorrow's a week ago, and you think, oh, tonsils. That doesn't sound bad as an adult, not a fun thing. So, yeah, I've heard it's bad. Yeah, there's a referred pain that gives you, like, terrible ear pain, on top of the fact that the where they slice the tonsils off, like they can't stitch it up, or anything like that. So it just heals over. Then eventually you have scabs in the back, and then they have to get it's just, it's been six days so far, and Arden, who is really good with pain, like just, I think having autoimmune issues makes you maybe a little more accustomed to not being comfortable sometimes, right? You know, joints and things like that sometimes. And she's like, every four and a half hours, she's like, it's almost time for my pill again. Like, if I wait too long, it's gonna be terrible. And then the the refer to your pain gets she said it feels like she's like, you ever like, put a Q tip in your and it goes in too far and like, feels like it pokes the back, and that's sharp pain. I was like, yeah, she goes, it's just like that all the time. I was like, oh geez, It's so terrible, like, so Nevertheless, I have to call and, you know, her doctor for something. But she she tried to speak yesterday for the first time on like the fifth day, and she said she wrote down. She's like, that was not a good idea. That hurt really badly. I'm not doing that again. So anyway, she hasn't spoken in a week. That would be very hard to do. Yeah, you I would be tough for me. Although they've been doing a lot of different things, I get a lot of texts with long descriptions. We have a white a portable whiteboard. She's writing stuff on constantly. Last night, her girlfriend found like, a translation tool or something. It speaks it out loud. So there was just a robot voice in the house last night saying stupid things for a while, a lot of stuff was going on. Do people call friends? Who are girls girlfriends still? Or is that a thing? I remember my mom saying, My girlfriends, you call your friends girlfriends? The girls?
Linda 45:16
I don't and I don't think my daughters do that, yeah, but it is something that when I was young, people say, my grandma would say, I'm going
Scott Benner 45:25
to stop saying that. Then her friends, anyway, her dumb friends were over yesterday, then they were doing that. Okay, so we have it laid out here. We understand the lay of the land for all three kids. So I want to spend the rest of the time talking about how you are. I don't know it managings Maybe the wrong word, but like, How are you, I guess, managing the right word. How are you managing the unknown part of your middle daughter's half diagnosis is your younger daughter feeling any certain way about her sister getting type one at some point, how do you manage, in general, with all these health issues going, like, Do you have a job? Yes, I do. Oh, my God, you shouldn't have to have a job.
Linda 46:11
Yeah, there are days I've had that thought,
Scott Benner 46:13
yeah, there should be some sort of societal agreement where, like, your three, your three girls, have three different autoimmune issues, and you're like, Yeah, you know what? You don't have to work anymore. Like, how do you manage this whole like, can I just say cluster? How do you imagine
Linda 46:27
it's just a lot they're they're old enough that they do a lot of it. So for me, it's a lot of well, like, support and listening and helping them to figure out. Like, when my oldest is dealing with Doctor stuff, I go with her to most of it, and I've told her, I'll do that forever. I don't care. I mean, I know she can handle it, but I'm here to support you, yeah, just looking at test results with her and helping her then to figure out I should talk to my doctor about this, you know, giving her that kind of guidance so that she can be independent. My daughter with type one. I'm still decently hands on. She does everything on her own, but I do help with carb counts. I help her when she's high, trying to get her back down in range and get up in the middle of night and give her juice. I don't know. I guess I just do it a lot of texting so that when I'm not there, like if I'm at work, I actually changed. I didn't leave employers, but I changed my job a year and a half ago, and part of my reason for wanting to is so that I had a little bit more access to my phone, because I work in a school and I was more in a classroom before. Now I'm the secretary, so I have more flexibility to respond when they need something.
Scott Benner 47:43
So you've adjusted your life a little bit. But moreover, you're just telling the kids, like, Look, I'll be there for you as long as you need. Like, but you're actually going through things, which I think is important. You're not just like, like, oh, the doctor said this, then you just wander off and don't like, you're actually considering what's going on and trying to teach them at the same time how to think about it. Yes, that's awesome. Where did you figure that out? Like, did you have, like, a good parent or something? Well, I
Linda 48:07
did have good parents. Yeah, I don't know. I mean, I just, I think it's just me. I mean, I knew that I'm gonna support them and, I mean, I didn't go through hell stuff like this when I was a
Scott Benner 48:17
kid. But, yeah, you'd have anything at all growing up,
Linda 48:21
I had asthma,
Scott Benner 48:22
asthma and, oh, and the anxiety, the anxiety when you were younger, as well,
Linda 48:27
not as bad. I mean, it's not like I'm bad. I don't want to use that word. It's
Scott Benner 48:31
there. It wasn't as intense as it is now, yeah, I gotcha. Do you have an idea of what age that came on? High school time period was probably the hardest. Do you remember anything happening, like traumatic or like,
Linda 48:47
I moved between my freshman and sophomore year and changed high schools, and that was not
Scott Benner 48:51
easy. Like, your family just moved. There was no like, your parents get divorced. My dad
Linda 48:55
was a principal at a school, a really, really small high school that closed, like right before school opened, they decided to close. So then he didn't have a job. We moved, we were in New Mexico. Then we moved to Ohio to live with my grandmother, and then so I suddenly had to go to a brand new school where I knew nobody. Okay, so that
Scott Benner 49:17
was tough. You found that tough? Yeah, yeah. I'm trying to decide if all of this would be helped a little if your husband was a little more involved. Like, do you ever wonder, like, hey, like, it's fun that we've been doing it like this, but there's a lot going on here, buddy, maybe you need to, like, jump in
Linda 49:33
sometimes I think that. And like, he's fine. Like, if I'm not here, he's gonna take care of people, right? Yeah, if I, if I go away like I, I go away with my friends once a year for a weekend, he's going to make sure that he wakes up if she needs a juice, you know? Yeah, he's, he's going to make sure that everything's safe and taken care of. So I do appreciate that. Yeah. I think he just kind of looks at and thinks that I figured it out, it's all under control.
Scott Benner 50:06
What about the long term worry about the kid with the two antibodies, or the the impacts of the Crohn's? Like, do you conversate with him about that?
Linda 50:14
We do? I mean, I think he worries more about our our daughter with the type one, just because, I mean, her management is okay, but it could be better, yeah? And she's young, so she's looking at the here and now, what helps me with what I need in the moment, whether it's anxiety wise or whatever the situation is, and not really thinking about what my life be like in 10 years. Yeah, you know, yeah.
Scott Benner 50:42
She's not worried about a higher blood sugar and what it means when she's 35 right? Yeah, right. And
Linda 50:49
she, she, she has gotten better, but, and then you go to the Endo, we were last actually, at the end of in February. Her a 1c was 6.90
Scott Benner 50:58
that's not, listen, that's pretty great, not horrible, right? I hear what you're saying.
Linda 51:02
It could be better, and then the endo just says, Oh, you're doing so great. That's
Scott Benner 51:07
all they say. They say that to everybody, by the way, yeah, you could have a 13.9 and they'd be like, you're doing great, and anywhere in between. I don't think I've given a pretend magic wand to anybody and asked a question in a while, but like Crohn's type one, the knowledge that type one is coming. Which would you take away? If you could only take one away from somebody? Ooh, that's tough, because I have my answer. My answer is never what your answer is, but I'm still I got mine. I'm ready.
Linda 51:35
So if I'm dealing with what we already have right now, I'd probably take away the one make sure my middle daughter doesn't get it, because she's preventable. Interesting, right? Yeah, the other two are already in it.
Scott Benner 51:48
I always, I always love people's answers. I would do Crohn's. It's tough. Crohn seems the toughest to me. Yeah, I mean having, I want to be clear, I don't have Crohn's or type one diabetes, and nobody's telling me, I'm about to get type one. So this is all from a very academic point of view. I No one's ever said the thing I'm thinking so far. But yeah, that Crohn seems like, it just
Linda 52:11
seems terrible. It is horrible. Yeah, ideally, as she continues the biologic, she can get remission and being like, feel pretty normal, right? Yeah. But I know, like my mother in law, when we got the diagnosis for Crohn's, said, oh, you know, I know it's bad, but I think it's far worse to have diabetes. And honestly, I kind of thought I don't know about that, because we know that we can manage diabetes. You can feel okay if you're taking care of yourself, right? Yeah, Crohn's is kind of like, oh, I should not have eaten that. And now I'm in a flare and I'm intense pain. Little things can happen,
Scott Benner 52:50
yeah, it could last a week or more, too, right? When it first Yeah, definitely, yeah. It's funny. I almost feel like a hypocrite, because I am very much a person who I don't see any value in comparing people's struggles, I mean, but I was just, I asked, because you're the mother of all three, and I thought, like, What is your perspective on this? I'm assuming that you would, you know, try to use the magic wand to make two more magic wands, and then I would help everybody make them all better. Exactly, exactly. There's two people who already know what it's like to live with this and they're getting through it. If you could make a wish, you'd make a wish that if you could only impact those three people in those three things, that they the one person
Unknown Speaker 53:31
didn't get it, yeah,
Linda 53:33
I'm sure that they would think that's not fair, the two that are already dealing with stuff, right? But
Scott Benner 53:38
yeah, no, I mean, I can make, I'm sure they can all make a compelling argument for themselves. Yeah, they could. Yeah, well, that's interesting. Oh gosh. Is there anything we haven't spoken about that we should have? I don't think so. We're doing okay, yeah, yeah. You comfortable? I am good, good, good, good. I had to figure out there's you have, like, a little pause before you answer. I stepped on you a couple of times earlier until I figured out your pause. Some people pause because they have nothing to say, and some people pause before they speak. This probably sounds pretty academic to people, but pretty obvious. I got confused with your pause twice where I thought you weren't gonna say anything, but then I realized you were collecting your thought. So I apologize if I did that earlier, but it's okay. Thank you. How do you find out about the podcast?
Linda 54:22
When we were in the hospital at diagnosis, I don't remember who a nurse, social worker, somebody said, oh, there's support groups on Facebook. So I googled, or I went in Facebook and searched, and yours came up, and so then I found the Facebook group, and then the podcast, and very early. So it was super, super
Unknown Speaker 54:41
helpful. You with the Facebook group first?
Linda 54:43
Yeah, I was in the Facebook group first found out about podcasts. I think I kind of just started at the beginning, okay, before I realized that there were different series, and, yeah, and it was four years ago, so
Scott Benner 54:54
everyone should start at the beginning. First of all, because Scotty needs to download, but, but yeah, I just didn't know. Like the people's pathway to it. So she didn't, the nurse didn't specifically say, Go find Juicebox. She said, Go find support. Yeah, you googled and founded Facebook, or you searched in Facebook. I
Linda 55:10
think I went on Facebook and searched type one parent support groups. So it helped, because very early on, then I became more comfortable with using insulin and understanding how it worked, and understood what the doctors were saying, and so it made a huge, huge
Scott Benner 55:27
difference. That's awesome. That's really great. And you actually made it from the Facebook group to the podcast, which is, by the way, the most difficult transfer. Hold on a second. My wife is overseas at work. Hey, Kelly. I'm recording the podcast. You can say hi to Linda real quick, and I'll call you back. Quick, and I'll call you back in two minutes. Okay, Hi, Linda. Hi. Linda said hi, but you can't hear because I have here headphones on, so I'll call you back in a minute. You want to check on art, and she feels nauseous and dizzy right now from the pain. I'm going to get down to her in a second. Bye, my wife has had to travel so much for business lately that as she left, I was dropping her off at the airport, and she's just looked at me like she was 10 years old. And she's like, I don't want to do this. Just want to be home. I was like, just get on that plane. We're almost done. 10 more years. Will retire. That's the first time it was ever heard Kelly's voice. It's interesting. Yeah. Oh, well, you're the first one. Linda, I'm sorry. The hardest translation to make is from Facebook reader to podcast listener. Okay, like, so it's hard. It's I used to think about like. I used to think I had like an ecosystem, which I do, but like the Facebook group and the podcast, but I used to think of them as like one thing. It took me a while to realize they are two completely separate entities and and that there are certain people who prefer audio and certain people who prefer reading. And right there's not as many crossover people who prefer both, who like both. So anyway, it's always interesting to me how people find their way to the to the audio.
Linda 57:05
I was not a podcast listener, yeah, so I think yours might have been the first podcast I ever really listened to. But yeah, it was good, and exactly what I needed, cool.
Scott Benner 57:15
That's awesome. I'm glad to hear it. Yeah, I appreciate you sharing this story too, and I want to just check one more time, because I took you all over the place. Did this go any way, the way you expected
Linda 57:24
it to? Or well, not entirely, but I got what I had in mind.
Scott Benner 57:29
Okay, if I put you in charge of this, I made you the producer, what would I have asked you about and stuck to,
Linda 57:34
I don't know. Oh, that's an interesting question. I got, like, I wanted to talk about the diagnosis and trial net. There's so much controversy about trial net that I see in the Facebook group that that was part of, I really just wanted to share our experience, because it's been a positive experience. What
Scott Benner 57:49
do you think the controversy is? What people just talking about? I don't want to know versus I want to know whether or not you should know or not. Well, I mean, you're an anxious person, and you know, is it valuable knowing?
Linda 58:00
Yes, I'm very thankful, because we can either find those prevention methods and delay, or when it's inevitable, we're going to be able to walk into it slowly. I
Scott Benner 58:12
have to tell you, that's how I think about it. And I think it's interesting that a person who finds themselves being anxious thinks the same way, because I would think that the again, I've said now, said academic like, five times, but the academic argument against that would be like, well, if I'm an anxious person, it gives me more to be anxious about. But I don't think that's true at all. Like, once your one kid's got type one, your other one's got a different issue that you know also seems inflammation related, right? Crohn's right. You gotta start looking at the third one thinking, like, oh, like, something's gonna happen. And then there's that anxiety, the never knowing, right?
Linda 58:46
Am I right? Yeah, no, yeah, I think I would worry anyway,
Scott Benner 58:49
yeah? So now every little thing, yeah, at least now you have good information. If you're going to be concerned about something, it's not and then it's not just mindless worry, it's actual thoughtful planning, right? Yeah, that's all so you would tell people do it? Yes, I definitely would. All right, there you go. I like, by the way, when I asked you, like, Did this go the way you expected? You said, No. I said, Well, how should have gone to you? And I don't know, reminds me of, Have I ever told you guys how I paid for my wife's engagement ring? I'm not sure. I don't think I have. So we got married without an engagement ring because we were poor, and actually my wedding band and her wedding band, I think we paid $50 for both of them in our friend's living room because their friend was a jeweler. I'm making air quotes. It's possible My rings are stolen. I'm not sure exactly, but I wanted to get my wife like a real ring, but we were married with just bands, and then by the time she was pregnant with Cole, we'd been married for four years, maybe, and we were nowhere near getting like, you know, like an engagement ring, right? And I we, you know, planned for me to just. Stop working, but I had this like enough of a skill from my job that I thought if I could just get two, maybe three freelance gigs after I'm done working, I could pocket all that money and buy her a ring with it, right, right? I ended up doing that. And by the way, at that point in my life, I was doing graphic design, not well for a credit union, okay? But, you know, I did. I picked up like three jobs, and I at one point thought, why? Maybe I'll just keep doing this on the side. Like, you know, it's a little extra. I did three jobs and I made, if I'm remembering correctly, I made $10,000 over those three jobs. Like, it was like, months of work, and, you know, it was fine, like, what? But what I noticed over and over again, because now I was doing designing for different people, not just like the guy I used to work for in the department I was in, you get hired based off of your samples. And people would say, Oh, I love what you do. I'd like you to do something for me. And then you'd give them a, you know, say, Here, here's my vision for this. They go, Oh, no, not that. And then I'd say, oh, okay, then what? Then? And they go, Oh, I don't know, but not that. And I remember sitting in a meeting once where I actually had to bring Cole in a carrier. Okay, so I want you to imagine I've got coal in a carrier. I'm designing this postcard for this, like bank or something like that. And I pull it out, it's exactly what they asked for. I am telling you, it is exactly what they asked for. And I put it down, and the woman goes, no, that's not right. And I said, it's exactly what you said. You said you wanted this here, this here, like this. You wanted this larger than that. This is exactly what you wanted. And they were like, yeah, no, that's not right. And I said, Well, what do you want? She goes, I don't know, but not that. And I remember in my mind thinking, you mother, and like, I was like, and it's when it hit me, like people don't know what they want. They just know what they don't want, right? Anyway, that's how it made me feel when you when you said, No, this did not go the way I expected. How should it have gone? I don't know. No, no. So anyway, I promised Linda I wasn't going to curse. And then that went right out the window. Do you curse at all? Linda? Would you like to curse at all? I'll bleep it out. I don't. No one would know if you did like I'll make sure it gets bleeped out completely. This is completely. This is your one chance to say something terrible out loud. No one will even hear it. No, that's okay. Oh, that's so lovely. You're lovely. Hold on one second for me, you were terrific. Thank you. Yeah.
I'd like to thank the blood glucose meter that my daughter carries, the contour next gen blood glucose meter. Learn more and get started today at contour next.com/juicebox and don't forget, you may be paying more through your insurance right now for the meter you have then you would pay for the contour next gen in cash. There are links in the show notes of the audio app you're listening in right now, and links at Juicebox podcast.com to contour and all of the sponsors. Thanks for tuning in today, and thanks to Medtronic diabetes for sponsoring this episode. We've been talking about Medtronic mini med 780 G system today, an automated insulin delivery system that helps make diabetes management easier day and night, whether it's their meal detection technology or the Medtronic extended infusion set, it all comes together to simplify life with diabetes. Go find out more at my link, Medtronic diabetes.com/juicebox the epic episode you just enjoyed was sponsored by the twist a ID system powered by tide pool. If you want a commercially available insulin pump with twist loop that offers unmatched personalization and precision for peace of mind, you want twist, twist.com/juicebox, I can't thank you enough for listening. Please make sure you're subscribed, you're following in your audio app. I'll be back tomorrow with another episode of The Juicebox podcast.
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