#1548 Extra Dirty Toilet
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A shocking pre-diagnosis moment involving an unclean toilet is the least of this episode.
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Scott Benner 0:00
Welcome back, friends. You are listening to the Juicebox Podcast.
Anthony 0:14
My name is Anthony, 25 years old. I've been type one for about three years I live in Australia, originally from the UK,
Scott Benner 0:25
my grand rounds series was designed by listeners to tell doctors what they need, and it also helps you to understand what to ask for. There's a mental wellness series that addresses the emotional side of diabetes and practical ways to stay balanced. And when we talk about GLP medications. Well, we'll break down what they are, how they may help you, and if they fit into your diabetes management plan. What do these three things have in common? They're all available at Juicebox podcast.com, up in the menu. I know it can be hard to find these things in a podcast app, so we've collected them all for you at Juicebox podcast.com, please don't forget that nothing you hear on the Juicebox Podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. This episode is sponsored by the tandem mobi system, which is powered by tandems, newest algorithm control iq plus technology. Tandem Moby has a predictive algorithm that helps prevent highs and lows, and is now available for ages two and up. Learn more and get started today at tandem diabetes.com/juicebox this episode of The Juicebox Podcast is sponsored by the Dexcom g7 the same CGM that my daughter wears. Check it out now at dexcom.com/juicebox,
Anthony 1:46
my name is Anthony, 25 years old. I've been type one for about three years. I live in Australia. I'm originally from the UK.
Scott Benner 1:55
Okay, Anthony, is there any autoimmune in your family? Yeah, there's
Anthony 2:01
celiac in my family. I've got a type one cousin. There's a bunch of hypothyroid there's a few different things. Um, that's me and my my cousin are the only type ones. Only
Scott Benner 2:11
type ones. Okay, did you live your life growing up thinking like something might happen, or was it not talked about that way? No,
Anthony 2:19
not at all. So I was always someone who never, never got sick and didn't really have anything else and so completely out of the blue, really, yeah, you didn't
Scott Benner 2:28
realize you didn't get sick because you had a hyper, overdrive, auto immune, immune system going, Yeah, I guess, all right, it was like working overtime one day. It was like, You know what we should do today? Let's go find that pancreas, see what that thing's doing. Yeah, exactly. How did you end up in Australia from the UK, and
Anthony 2:45
my family moved so I was, I was about 11, and we all moved to Australia. My parents always wanted to move out of the UK. We got close to moving to Sri Lanka, all places. Oh, and then, and then, I think my mom got a better job offer, but then eventually
Scott Benner 3:01
moved here. I mean, this seems like the only time Anthony, I'm going to be able to say this, so, oh my god, I guess so there's times people don't know. It's not fun making a podcast, because sometimes you go to say something you think like, Man, this sounds dopey, you know? And I generally will share, do you listen to the podcast? Yeah, all right. So I'm happy to tell people I have a chameleon or two, right? But I actually, God, here we go. I keep a small lizard that's from Sri Lanka, and they're endangered there. Oh, god, they're endangered there. So my goal is to let the two I have breed and then I don't like I don't I'm not really looking to be in the reptile sales business. I'll get them back to the breeder that gave them to me so that he can kind of disseminate them out into the hobby, so that they, hopefully, you know, can gain their numbers. Anyway, they're called kofodus dambara. I can't believe I'm saying
Anthony 4:00
that I love that. I love to have a pet lizard.
Scott Benner 4:02
They're very tiny. They're only a couple of inches long. They live in a fairly small enclosure. They get along super well. They're friendly, like, they kind of jump on your hands while you're, like, feeding them and stuff like that. Yeah. And they're, you know, because of deforestation, they're not doing well in Sri Lanka. So, yeah, anyway, God, no one. I've never once said something on the podcast that I wanted to follow up with. Please don't tell anybody this. Anyway, I'm by myself, and I'm embarrassed, and I shouldn't be like, I just think it was. It's just a nice thing to do. You know what I mean? Yeah, anyway, all right. So you, you're like, you're 25 you're like, Dude, stop it.
Anthony 4:43
No, I love animals wild. I've done a wildlife degree. I've got a bachelor of wildlife science. I love everything about Yeah,
Scott Benner 4:50
oh, no kidding, yeah. I'm telling the right person, yeah, yeah, definitely the right person. You went to university for what
Anthony 4:57
a bachelor of wildlife sciences. It's called. Yeah, yeah, what do you do with it? I teach childcare. I'm a childcare teacher. Oh, I don't really use a degree anymore, but yeah, it's all about. It was all about anything from research with animals to zoos, anything to do with wildlife. Who covered really? Yeah, was
Scott Benner 5:19
it hard to get a job doing that? Or did you find yourself not interested? I ended up working in
Anthony 5:24
it's called Bush regeneration in Australia. I think some places called it rewilding. I was killing weeds in national parks, right? And my degree didn't count anything. So I had to do a certificate and be on a trainee wage like, Oh, my God. I ended up leaving that when I was diagnosed.
Scott Benner 5:41
Oh, in the 70s here in America, there was a wave of Bush regeneration as well. Yeah,
Anthony 5:47
no, it's really good. I really enjoyed that. Oh, but it was just kind of kind of the workplace sense of like they didn't want to pay us and they wanted to give us some training wage and all that sort of stuff. So
Scott Benner 6:00
now you teach kids yeah. And now teach kids, we teach them not to get a degree in what?
Anthony 6:04
Yeah, yeah, exactly, in wildlife science, whispering
Scott Benner 6:08
in these kids ears, listen to me, math, science, okay, not wild. But does it help you live in that zoo that they call a country that you're in? Yeah,
Anthony 6:19
at least if we get a snake at work, I know what to do.
Scott Benner 6:24
You're the guy. Can you imagine people like snake and they're like, Oh, don't worry, Anthony, wasted four years on a degree. We'll go get him.
Anthony 6:30
No, yeah, definitely. Every time there's an animal. Do you keep animals? Personally, just got a dog and a couple of cats, but I really want to get like, a lizard or something.
Scott Benner 6:40
You guys have some pretty cool lizards in Australia that you can keep. Yeah, we
Anthony 6:45
do, yeah. It's quite restricted on we can't have, like, not native lizards and things like that. There's a lot of native ones you can have yet,
Scott Benner 6:53
right, right, right. Awesome. Okay, all right, all right. That's Yeah, listen, well, maybe you'll get something one day. We've taken your Bearded Dragons here in America and turned them into like kittens. They're everywhere. They're pretty cool. Match, yeah, I'm just gonna say this, and then we're gonna move on. There's a girl on Tiktok who's taught her bearded dragon to poop in the toilet. And it's, it's somehow awesome and disgusting at the same time. I don't know,
Anthony 7:16
yeah, I don't know what to think about that. She holds it over,
Scott Benner 7:19
and it just like, glad. And I'm like, oh, it's happening anyway, not the point. When did you first get signs of type one, like, what? How did it present itself?
Anthony 7:29
Yes, it was while I was working in Bucha generation. So I got a couple of ticks on my head, okay? And I got sick from that with some sort of tick virus. Sorry, my dog's about to knock over the coffee table with some sort of tick virus. And I just never felt like I got sort of recovered properly from that. I started feeling tired. I was super thirsty, but it was starting to warm up. And this was my first year working in Bucha generation. So I was like, Oh, it's my first summer. I'm just drinking lots of water. And I was going to the toilet a lot, and I was like, Well, I'm drinking lots of water, so I'm going to toilet a lot. But eventually got to the point where I couldn't, I could wake up twice every night to go to the toilet and like, that's not normal, right? And so eventually I went to the doctor, and he's like, Ah, I was vegan at the time. He's like, Oh, it's probably some nutritional thing because you're vegan.
Scott Benner 8:19
Throwing his own politics into his
Anthony 8:23
but he threw in the glucose test just just in case, he said. And then I just got this call, and we like, oh, it's type one. And he it's not type one, sorry. He said he's type two. And he was really shocked. No, he said, because of my age, it must be type two,
Scott Benner 8:39
that's what he said, because you were 22 you can manage diabetes confidently with the powerfully simple Dexcom g7 dexcom.com/juicebox, the Dexcom g7 is the CGM that my daughter is wearing. The g7 is a simple CGM system that delivers real time glucose numbers to your smartphone or smart watch. The g7 is made for all types of diabetes, type one and type two, but also people experiencing gestational diabetes. The Dexcom g7 can help you spend more time in range, which is proven to lower a 1c The more time you spend in range, the better and healthier you feel. And with the Dexcom clarity app, you can track your glucose trends, and the app will also provide you with a projected a 1c in as little as two weeks. If you're looking for clarity around your diabetes, you're looking for Dexcom, dexcom.com/juicebox when you use my link, you're supporting the podcast, dexcom.com/juice dexcom.com/juicebox, head over there. Now let's talk about the tandem Moby insulin pump from today's sponsor, tandem diabetes care, their newest algorithm control iq plus technology and the new tandem Moby pump offer you unique opportunities to have better control. It's the. Only system with auto Bolus that helps with missed meals and preventing hyperglycemia, the only system with a dedicated sleep setting and the only system with off or on body wear options. Tandem Moby gives you more discretion, freedom and options for how to manage your diabetes. This is their best algorithm ever, and they'd like you to check it out at tandem diabetes.com/juicebox when you get to my link, you're going to see integrations with Dexcom sensors and a ton of other information that's going to help you learn about tandems. Tiny pump that's big on control tandem diabetes.com/juicebox the tandem Moby system is available for people ages two and up who want an automated delivery system to help them sleep better, wake up in range and address high blood sugars with auto Bolus. Yeah, yeah, awesome. Yeah. You're young still like how little people know is probably going to continue to shock you for another 15 years, I would imagine,
Anthony 11:01
yeah, well, he called the endocrinologist from the hospital when he got these results, and this was what the endocrinologist told my GP, awesome. She's just great, right? So it says he asked me about all like, what I eat, and so it says on my like chart from my diagnosis, because I said us, I don't really drink sweets. I don't drink soft drinks. Sometimes I have like, a nice tea, and it says drinks lots of sugary iced tea. And I was like, it's not really what I said.
Scott Benner 11:29
I said, sometimes I have a tea, and
Anthony 11:33
they're like, Aha, yeah, exactly right.
Scott Benner 11:37
Describe yourself, Anthony. You're lean, chubby, muscular, lean,
Anthony 11:42
and I was before diagnosis and type one and everything, I was 65 kilos already. I'm about six foot not to know what that is in town. Sorry, to find out, kilos.
Scott Benner 11:53
How much did you lose? Tell me. Tell me again. I'm sorry, 10 kilos. That
Anthony 11:58
sounds like a lot, yeah. And I didn't really have that to lose.
Scott Benner 12:01
65 Why does do you love when you type something in and it changes what you type? Like, oh,
Anthony 12:08
it's great, isn't it? Yeah, you don't have to, you don't have to change it for me. Yeah. Don't have to guess, yeah.
Scott Benner 12:14
Don't guess I typed it myself. I'm good with it. If I'm wrong, like, you know, I'll fix it. Let's see, 65 kilos is 143 pounds. Oh gosh, yeah, you didn't and you're six feet tall, yeah? Oh yeah, you don't have any there's no way for you to lose right? Yeah, to go. Was it? Yeah? Okay, yeah. So 22 like, are you with the doctor, with your parents? Are you by yourself?
Anthony 12:39
No, I just went by myself. So he gave me a call in the morning with the results, and was like, Oh, can you come in this afternoon? And I was like, yeah. So I carried on working, like, like, carrying, like, a 25 liter pack of weed killer on my back, and, like, hiking through the bush the rest of the day. And then I was stopped at the bakery and got a caramel slice, because I was like, well, it's probably the last one I'm gonna have for
Scott Benner 13:02
a while. Oh, no, kidding. You had that, and you're not a big sweet, but you had the fear. You're like, I better grab something real quick. Yeah, exactly. Oh, my God, by the way, how much money are you making crawling around in the bush again for the with the RE film? Like, next
Anthony 13:14
nothing. Next nothing. Yeah,
Scott Benner 13:18
I imagine you out there like half in DKA, and you're just like mumbling to yourself about your degree and the weeds.
Anthony 13:26
Yep, COVID in ticks and leeches and yeah, oh,
Scott Benner 13:29
awesome, yeah. No, no, there's no amount of money. How much would have made it a good job being serious, I
Anthony 13:38
don't know. I genuinely enjoyed it, like it was the money was the only bad thing about it. For me, awesome. There was one place we worked for where we had to put on, like, knee high gum boots and like, wade through mangroves to get to the place that we're working. And you'd misstep, and then you boot fill up with water, and that would just be it for the next hour walking with a boot full of water and but I loved it. It's great
Scott Benner 14:00
you did. There's no feeling of like, I know a poisonous snake is gonna kill me now. No,
Anthony 14:05
when we saw a snake, I was excited. That was, yeah, good to see it.
Scott Benner 14:10
I got you all right. I don't know what's wrong with you people, but I know. Listen, by the way, also I know I'm the one with an office full of reptiles, but like, I still don't understand, I don't understand the whole snake can kill me thing. And everybody's like, Oh, look. But anyway,
Anthony 14:22
as long as it's over there and I'm over here, well, I know, but what
Scott Benner 14:25
happens if you, like, come upon it by mistake, they hear
Anthony 14:28
you way before you see it. So most of the times you see a snake, it's slithering away. So I'm counting on the snake, not the one to run, yeah, yeah, pretty much, right. But, but they do okay, that's what they do once working with like slashing this, these bushes with machetes to try and make paths for us. And then I go to lift it up to slash, and I look at where I'm about to hit, and there's a snake on the branch I'm about to butcher the snake. So to, like, stop and try and move the snake with the handle. It was a pie thing. It wasn't a venomous one,
Scott Benner 15:01
sure. Now that one would have just like slowly constricted you till you died. Not so bad, no, not so bad at all. When your eyes are popping out and you're still alive and everything, it's awesome anyway. So you're at the very not helpful Doctor getting even less helpful advice from an endocrinologist. So what's the next
Anthony 15:19
step is? Omingering about doing the blood test for type one, and ends up being like, Oh, well, you got to do blood tests again in a month, so we'll do it then. And it refers me to a diabetes educator and to a different endocrinologist, because I live in a different area locally, so I didn't get the same endo that was on the phone, but I just took my time getting my appointments and sorting that all out, because of what I'd later find out was ADHD. But at the time, I didn't know,
Scott Benner 15:48
how did you feel during that that period? Like, did you feel like, oh gosh, I feel ill. I should do something, or did it not feel emergent to you?
Anthony 15:56
Yeah, well, I started on Metformin and trying to do a do a diet. But, like, my diet was really, like, healthy and low carb anyway, just cut out the ice tea, yes, but I started, like tracking it and using there was like this CSIRO diet with like points for different types of food and all this weird stuff. And it helped a little bit, but not much. Like I was still waking up, and my blood sugar would be like, 12 in the morning, and, yeah, it would still spike every time I ate because I wasn't having insulin. You
Scott Benner 16:30
know, do you think that you were in some sort of a honeymoon situation?
Anthony 16:33
I think so. Yeah, I think definitely that helps, and that's why the Met farm has sort of helped a little bit at first.
Scott Benner 16:40
So between the honeymoon and you now having an even more restrictive diet, were you actually able to restrict your diet more?
Anthony 16:48
Like, yes and no. Sometimes it was sort of stayed, like I said. This would have been like 1617, it would come down and and hover around the sort of 1012, sort of mark, which is still obviously high, yeah. But then I would, I would just be, like, frustrated, I think that it just wasn't working, and that it was so restrictive, and then I just go and get a chocolate bar, just because, like, I'm just gonna eat anyway, because my sugar's high anyway.
Scott Benner 17:11
You had that feeling of just, like, meaningless, and it's not doing anything. So I might as well, yeah, live my life. Okay,
Anthony 17:17
yeah, definitely. And I sort of, I like, I had the feeling that the diagnosis was wrong. It was just getting the like, what to do about it right. Like, in that month, trying to get back into the diabetes educator and like, the doctor was, like, not wanting to the blood test and just trying to like, yeah,
Scott Benner 17:35
yeah. Did you have that feeling because of your family history? Or Had that not even occurred to you at that point? No,
Anthony 17:41
so that hadn't had an attachment. I didn't know that the autoimmune was all connected in that way. So I was like, I've got one cousin who's type one, but out of like, I've got like, 15 cousins. So like, yeah, I
Scott Benner 17:53
love that. That's great. That's great logic. You're like, but there's so many of them. It's only one, yeah, it's just one,
Anthony 17:58
right? That's not a family history. But when I actually look at autoimmune most, most of my family does have something. I imagine
Scott Benner 18:05
if you would have gone to the internet and said, Listen, I have 15 cousins, and only one of them has type one diabetes, what's the odds that I have it too? It would probably have come back and said, about the same odds of in the general population where diabetes is about one in every Yeah, yeah. You've been like, oh, okay, never mind. Plus, it's not the it's not just the cousins you're tracking. It's everybody in your family and, you know, historically and everything else. Yeah, wow. Well, that sucks. So do you live by yourself at that point, or do you live with your parents? I live with my partner? Yeah. Okay, okay, so you're not with people who like, love you, raised you and is looking at you going, like, something's wrong. We have to help. You're off on your own. You tell your parents I might have type two diabetes. And they're like, Oh, let us know what goes on. Is that about it?
Anthony 18:48
Yeah, yeah. They don't know more than me about it, so they're like, sure. Like, that's the doctor said, Right, right. My partner was very much actually. He was like, I don't think you have type two he was pushing me to try and get the correct diagnosis stuff.
Scott Benner 19:01
Have you ever spoken about with him? Like, what gave him that idea? Yeah, he
Anthony 19:05
knew a couple of people as a kid with type one, and he was just like, You're so skinny, I see the way how healthy you eat. You've been vegan, you like, basically go on a hike every day for work. Like, that's not type two. You know, it
Scott Benner 19:18
seems crazy that you might have type two diabetes, right? Okay, so did you listen to him? And if not, has he bugged you about it for the last three years? Yeah, definitely.
Anthony 19:26
He definitely takes credit, but definitely and for realizing his diabetes in the first place. He was like, that was
Scott Benner 19:33
me. Oh yeah, I would do the same exact thing. Eventually
Anthony 19:35
get the blood tests, and sure enough, it comes back type one. You're like, what
Scott Benner 19:40
was your first thought? Oh, I can't believe I got to go tell go tell him he was right, yeah, pretty much.
Anthony 19:48
I think by that point, I'd pretty much accepted that. Started listening to the podcast already as well at that point, and I was like, yeah, it doesn't sound like I have type two. How did you find the podcast? I found it through Tiktok. I was. Was searching on tick tock for diabetes, and then someone mentioned your interview with the Omnipod CEO. And I was like, that's not even in Australia, okay, but when I was looking for more more diabetes things, I was like, how was that podcast that somebody mentioned? And when I found out, yeah, it's so interesting
Scott Benner 20:18
to me. Like, you have to imagine, like, my position, like, I make this thing and I put it out, and I'm like, how do people get? How do people get? And like, you know, Oh, I saw a thing. And then I thought, Oh, that's not for me, because that's not even in Australia. But then, like, weeks or months later, you're like, What was the name of that pot? Like, that's such a Yeah. And
Anthony 20:34
then I thought, again, oh, it doesn't even have type one. He's just a parent. He's just all going to be about kids. Yeah. Obviously, when I listened, it's not Yeah, no,
Scott Benner 20:43
no. I don't have really the ability to speak like that. I don't, I wouldn't even know how to do that. I'm good with kids, though. By the way, I am going to children with diabetes this summer, and I'm going to do a whole thing with kids. Oh, yeah, awesome, yeah. I'm great with kids. But also, I had a conversation with a woman yesterday that, trust me, you shouldn't let your children listen to so I don't know, I just talk about things the way it occurs to me. So you find the podcast. Can I ask just real quick, I want to get back to your story. Do you just start listening randomly? Do you find out about the like, the series, like the Pro Tip series, or something like that? Like, how does what's
Anthony 21:14
your entre? I start off listening randomly, and I remember I like search, like Australia, and I search for things like that that I thought would be relevant and and then I happened across, I think, I think it was just one of the new episodes that came up was part of the series. And then that sounds like, Oh, I'll go back and find the rest of these
Scott Benner 21:33
interesting. That's helpful for me, actually. Thank you. I appreciate because what I'm trying to do is never how it's taken, like, that's the strangest thing of starting something like this, is that, I mean, I've been doing this now for 11 years, like, so in 2015 I was like, well, here's what I'll do. I'll do this, and this is the reaction they'll have. And then that didn't happen. And I was like, oh, so I do this, and then they have their own reaction. I'm like, okay, that makes sense. Like, you know, everyone's different, right? Yeah. And you think, okay, then there's, like, well, I made the Pro Tip series. It's there. Go find it. Well, that's not exactly how that works. And then, you know, we recently added like, another episode to it, and I remember somebody saying, like, Oh, I didn't even realize this was a thing. And there's part of you that wants to bang your head against the wall when you say, when somebody says, you're like, behind, trying so hard,
Anthony 22:19
yeah, you've made that specifically, and then no one's listening. Yeah, people are gonna find it, don't they?
Scott Benner 22:25
So anyway, it's, you know, always a way to, like, try to get people back to, like, I don't know, you know, the way social media works is that, you don't, I mean, think about it, like at some point today, you're gonna stick your phone in your partner's face and be like, Oh my God, look at this. Yeah, and a week from now. If I said, Hey, go back to last Wednesday, remember that video you showed him, you'd go, No, I don't know what you're talking about. Yeah, I'd have no idea. Yeah, it goes that quickly. So it's kind of my job to always be reminding people that so you find the new person without pissing off the people who already know, who don't want to hear over and over again about something they've already figured out. Like, it's a weird balancing act anyway. Yeah, it is. I deserve a lot of credit, is what I'm saying. Okay, so you wait the month eating chocolate bar is kind of given up, like, then you end up at the end dose appointment, and what do they tell you? Yeah,
Anthony 23:14
the diabetes educator was first the endo took ages to get into for the diabetes educator, but by this point, like, a couple of days before, I'd been diagnosed type one, after the results came back, and the GP given me insulin, and he's just put me on, like a sliding scale, really. And so the educator had the referral from when I was type two, and she looked at the referral and looked at me and looked back, and she was like, I don't think you're type two. I was like, yeah, so she, she was much more on to it than than anyone else so far had been. She's got me just doing just four units each meal at first, and then eventually, I think after a month or two, carb counting, okay, but she's really good at just letting me sort of do what I want with it. I just say, like, hey, like, I think I need to increase my basal. And she's like, Yeah, that sounds right, okay. And then eventually she was like, Yeah, you you've got this. You can start adjusting, like, whenever you feel like you need to just make sure you wait a couple of days. And this
Scott Benner 24:13
is gonna sound self serving, but I genuinely, I don't mean it this way, but do you feel like you learned how to take care of your diabetes
Anthony 24:20
from me? Oh, yeah, absolutely. Oh, I've told there's only a couple of people that I've met with type one since, since my diagnosis, but I tell them about your podcast, and I say I've learned more from you than any doctor or endocrinologist or educator anything. Definitely. So
Scott Benner 24:35
did you get the vibe from the diabetes educator that they were relieved that you knew what you were doing. You know what I mean? Because I try to imagine all the stories you hear of people are like, Well, I went to the diabetes nurse educator, or I went to the Endo, and I, you know, my a 1c, was nine or 10. I didn't know what I was doing. Like, I'm trying to put myself in their shoes, if they're like, oh, wow, good. Here's one that's going to be okay. You know, I
Anthony 24:57
think she was because, because the first I didn't, I. What I was doing, right? Sure, I think she picked up that I was, I was picking things up, and I, you know, wasn't going to be neglecting my kind I was gonna, gonna be putting the effort in and trying to figure it out. And she's like, well, if you can figure it out, then great, you know, and supported that, yeah, I'm
Scott Benner 25:16
gonna put this out there, Anthony, maybe somebody will hear this. And there's no way this would ever happened, but this is just something that I'd be super interested in. Like, listen, I should start again by saying, I know this can't happen. I'd love to be in that setting for a week and talk to people like, and figure out, like, is it just impossible, or are they missing something? Like, I like, I wonder, like, No, right? Yeah, it's super interesting, because, like, listen, far more people are gonna go to a doctor and then there's a coin flip. Either get one that is good at explaining it to you or giving you other resources, or you're not, and far fewer of those people are gonna make it back to me. So am I being unfair by saying, like, I can't believe that they're generally not able to direct people well or, like, if you put me in that scenario, would I be lost too? Because there's part of me that thinks I could do it. Yeah, I'd love to find out. All
Anthony 26:09
right. And this GP that that misdiagnosed me has been like, he was my family's doctor for a while, and he's been like, great with everything out he'd like, finally, after years of seeing a different doctor who is just doing like, rinses on my sister's ears because she had a chronic ear infection, this GP finally figured out that there was something more going on that we shouldn't just be like cleaning the ear infection. We should be figuring out what what the problem is, right? Why does this ear keep getting infected? Why does it happen? The previous GP didn't even bother thinking about that, right?
Scott Benner 26:44
No, so you're saying so you had a reasonable this person was better for you than somebody else was. But once, once you get into the the nitty gritty of diabetes there, I understand the GP, not, not under you understand,
Anthony 26:55
then he contacted the Endo. Yeah, I don't understand the endo
Scott Benner 26:58
at all. Right, that's the piece I
Anthony 27:00
don't get. Like, because, yeah, maybe it was just like, well, he's not my patient, so not gonna put the effort right, I don't know. Yeah,
Scott Benner 27:06
I've had people on here before. There's people listening right now, who I've spoken to on the phone for 45 minutes, and they've woken up the next day with a flat graph, yeah, like, so, I mean, how long was your doctor's appointment? Oh,
Anthony 27:19
I don't know. Nah, they're normally 15 minutes, but it was a lot longer he made. The longer one for me, I should have done even, uh, maybe an hour. I don't know. I don't
Scott Benner 27:27
know. I feel like I could do it. Is what I'm saying. I feel not just me, by the way, by the way, this is for those of you on Reddit who are like, he's so cocky, I don't just mean me. I feel like other I feel like other people could do it too, yeah,
Anthony 27:38
someone maybe with like, years of medical training should be, should
Scott Benner 27:43
be able to do I am a guy like, who just, like, spent five minutes telling you that I got a Sri Lankan pygmy lizard and I'm trying to take care of it. Like, yeah, you might not want to come to me for it, you know what I mean? But like, I'd like to explain to the very touchy people who live in the world that, like, just because I'm explaining how I feel doesn't mean I'm cocky. I'm trying to give you a reasonable look into how I feel, and it's not based on nothingness. Listen to Anthony, I saved him. Okay, definitely, absolutely, I was using the word save to be funny, but if you want to agree with it, I'm going with it. Yeah, I don't know like I it just doesn't seem right to me. But nevertheless, so you basically get your diagnosis, you get your meds, they sliding scale, you you go out, find the podcast, you're like, well, that's not how I'm going to do this. I'm going to do it this way. And now, three years later, your a 1c are where usually, well,
Anthony 28:31
the actual blood tests always come back in the fives, but my Dexcom always does it in the sixes. I don't think I think the six is more accurate. I think something's making my my actual a 1c less than it is, but either way, it's really good. Do
Scott Benner 28:45
you unconsciously do better before your blood draw? That happens to people?
Anthony 28:49
No, I don't think so. Okay, I don't think so. Yeah,
Scott Benner 28:54
Jenny explained it to me one time, like the the A 1c blood test is weighted towards, I think, most recent. So, yeah, sometimes people like, get super, like, type a about it, like, leading up to it and throw the the average off a little bit.
Anthony 29:09
Yeah, at one point my GP, a different GP, was concerned that I had like, a slightly low iron, and my a 1c was low, that it could mean that there was some, like, low level, like bleeding. But at the time I was I was booked for a scope for to test for celiac, okay, which ended up being negative, but he thought maybe might have been, that was your iron low. Well, it came back up by itself. It wasn't out of range low, but it was lower than the last test. If that makes sense, there's that
Scott Benner 29:39
GP doing a good job again, yeah, yeah, that's awesome. This
Anthony 29:43
is a different one. Now he's really good this. GP, yeah,
Scott Benner 29:45
no, that's awesome. Yeah, okay. Do you think it's possible you guys will ever adopt and name a baby after me?
Anthony 29:52
I'm not. I'm not sure Scott would be the name of choice. I'm afraid. No, I
Scott Benner 29:55
know it sucks. What could my name be? Where you're like, you know what? Let's go with it.
Anthony 29:59
I. Don't know. Hey, you're so
Scott Benner 30:02
young. You're like, Dude, I get no baby. Like, relax, yeah, I gotta gain 40 pounds and give up before we start doing like that
Anthony 30:14
exactly. I got enough of them at work, right? Like, Oh, yeah.
Scott Benner 30:18
I guess that really does give you some perspective. Definitely. I can't imagine. How many kids at once are in that room? 22 holy crap. How old are they? From three to five in my room? Oh, it must just be like herding cats all day. Oh, yeah, absolutely, that's absolutely. So what made you want to come on the podcast and
Anthony 30:41
it just listening and hearing everyone's stories is always just just so helpful. Has helped me so much. So I just come on and share and my story can help people think, great. Oh,
Scott Benner 30:51
that's awesome. Thank you, yeah. Well, you stayed up late to do this, so we should, we should make the most checking your note here. So I somehow, and you somehow, got through all of this without telling me you think your diagnosis was from a tick bite.
Anthony 31:08
Yeah, yes, I didn't even get to that, did I? So obviously, like I said, I had the tick back and got sick, but I think that might have been what triggered it. Like, you know that, like a virus typically, is a trigger. I hadn't, can't think of any illness I had. Otherwise, I just got this tick virus, and no thing that might be what trigger this.
Scott Benner 31:29
What is the virus called from a tick bite? Do you know there's a bunch
Anthony 31:33
of different ones, so they didn't test for a specific one? I can't even remember the names, to be honest. But yeah, I just got these two tick bites on my head, and then I was getting like, fevers and just like, incredible nausea. And like, I really wanted to vomit, but nothing was coming. And all of my, like, previous places where I'd been bitten by a tick, swell up, swallowed up, and got really itchy, like a mosquito bite, it was really weird.
Scott Benner 31:57
Okay, Powassan, yeah, there's a whole bunch
Anthony 32:01
of different ones. Yeah, yeah,
Scott Benner 32:03
I'm watching chat GPT like, think about it right now. Some people don't like that. It's now thinking out loud in front of you, but I enjoy watching what it's thinking. It's going through so many different ones. It's very interesting. But you get bit by the tick, and then how much later after that are you thinking, gosh, I have diabetes. I struggled
Anthony 32:21
to remember the exact time, but I think it must have been, like, a couple of months later that I, like, actually booked to the appointment and got to the doctors. But like I said, I was worried at first that I had some more serious tick virus. Like Lyme disease is, like, super controversial in Australia, whether it's here or not, but they often talk about Lyme, like diseases and things like that, from ticks that had about three work. So I was like, What do I've got something like that, and that's why I'm just not feeling back to 100% at all. Right? Maybe
Scott Benner 32:51
you got run down and, and then your immune system kicked in and and kept going,
Anthony 32:56
yeah. I think that must have been what happened. Yeah.
Scott Benner 32:59
So I'm gonna tell you that our friend says that there isn't a well established tick bite virus, in quotes syndrome in Australia, akin to like a tick borne encephalitis in Europe, or the Powassan virus in North America. In Australia, the medical focus of tick associated disease has historically centered on bacterial infections and toxin mediated effects that said, recent scientific investigations using next generation sequencing have revealed that Australian ticks harbor a diverse array of viral sequences, and then it goes on to explain them. That's crazy,
Anthony 33:34
yeah, they just don't really know much about them. Yeah, yeah, it's really something,
Scott Benner 33:38
okay. But still, you hear a lot of people getting some sort of virus, or getting an illness, or having even, I've had people on here that really swear that they've just kind of had, like, you know, something tragic happen to them, or, you know, shocking, I've heard about that. Yeah. So, yeah, it's interesting. But so you get ill and then you get type one a couple of months later, yeah, interesting. What are you talking about here with you got an ADHD diagnosis as well. When did that happen?
Anthony 34:05
So it took a while to actually go through and get the actual official diagnosis. So I got diagnosed last year, but it started after I was type one and the GP mentioned like, like this, you know, a big diagnosis. I can give you a referral to a psychologist, and if you're struggling, just let me know. And a couple of months later, I just was feeling really overwhelmed by it all, and just like that, it was just a lot to sort of process and having to do it every day. And I went as a psychologist, and she was about as good as the endocrinologist on the phone. She had me, like, breathing while I wash the dishes, and I don't really understand what else, but, yeah, but she sort of like, I don't know, didn't really look at the bigger picture, and just was talking about mindfulness, and that just wasn't working for me. And so eventually I just gave up the psychologist, and. Was like, Oh, whatever.
Scott Benner 35:00
So you went to a psychologist to talk to people, and she was to try to figure something out. And she's like, can you try deep breathing while you're doing the dishes? Yeah,
Anthony 35:08
talked about meditation. And I was like, I just can't concentrate while I'm meditating. Like, like, ADHD, right? Like, and she's like, oh, we'll try doing it while you're doing something, like washing the dishes. And I'm like, hardly ever wash the dishes. I'm procrastinating. She
Scott Benner 35:25
didn't pick up from any of this. She's like, I can't focus on the dishes and the meditation at the same time, and I don't really do the dishes because I tried to avoid the dishes. She
Anthony 35:33
Yeah, and I mentioned that, like, I felt a little bit like self conscious about my way after diagnosis, because I was, like, really skinny and like, people were like, like, someone said, like, like, Yeah, you look gone. Someone that just stuck with me that I look gone, and in my mind, I was like, Well, I don't look any different. Like, yeah, but she fixated on that a lot. That didn't really help with that. I don't know it wasn't for me, I guess so,
Scott Benner 36:00
you're around people friends, somebody says, Yeah, somebody uses the word gaunt, which you're like, Oh, awesome, yeah. And then you can't change. And
Anthony 36:07
looking back, it was true. Like, sure to blame this person. It was very true.
Scott Benner 36:11
But still, like, it stuck with you, yeah, yeah. And how so, like, does it come up in your mind? Is it every time you look in the mirror? Does it change how you eat? Like, does it have a lot of impact?
Anthony 36:23
No, no, it didn't change how I was eating or anything like that. I just started to just be conscious of like, well, that's, I don't even know how to describe it, hey, but I just felt like I didn't notice any, any physical difference. I only weighed myself after I figured out it was type one. I'm not one to weigh myself regularly, so I hadn't even realized I'd lost weight. And then I started well, like, if I didn't notice, is that just how I look all the time? Yeah,
Scott Benner 36:50
yeah. Does your partner mention it? Does he say, Hey, your body's different? Like,
Anthony 36:55
he noticed is but not noted. He didn't say I was going to like that, but he definitely noticed, noticed that after the fact as well, like, he's like, yeah, now that we like thinking about it, you just seem skinnier. But I thought it was just because you were so active at
Scott Benner 37:10
work, yeah, right. And then the weight didn't go back on after you were diagnosed.
Anthony 37:14
It did slowly, I think I gained over the sort of first six months of insulin, like five kilos or so, so maybe half of what I'd lost, but then I started going to gym and eating more. So now I've gained much past, not much, but like, past what I was pre diabetes as well, okay, in muscle and stuff. So yeah,
Scott Benner 37:37
all right. And how does the ADHD like eventually, when you figure out that that's the issue. What do you do about it?
Anthony 37:42
Yes, eventually it was my partner who was getting assessed. He, like years ago, talked to a GP about it, and the GP was like, Oh, if you have ADHD, then you would be able to sit still in my office. And so it sort of got dismay. But then his mum, just like casually mentioned, other doctors said that you had ADHD when you were a kid. Oh, he was like, Oh, thanks for telling me. So he was trying to, like, go through that, and I had to do an assessment for him. What's that assessment like? So it's just a whole bunch of questions on like, a scale of like, strongly agree to strongly disagree, of like, sit still on chairs. What else is there? Things like, well, losing track of what you're saying and stuff like that. And so I was just ticking all these boxes for him. And I was like, I did that one, I did that one. Oh, maybe I have this too.
Scott Benner 38:36
Oh, wow. So while you were helping him, you started thinking, this might be a thing I've got going on. Did they medicate that or what did they do? Yeah. So
Anthony 38:45
eventually, he started on medications first, and then when I eventually got, got into the psychiatrist, I started medications. What the end of last
Scott Benner 38:53
year? Okay, yeah. And what has that done for you? It's been,
Anthony 38:58
like, helped in ways I didn't even realize. Like, I feel like I'm like, way more proactive at work, like I didn't even realize I wasn't doing this, but I'm just able to sort of think ahead more, okay, I'm able to not great at doing that, the chores still, but much better than I was, like, the dishes aren't piling up, like the laundry just isn't sitting in the baskets all the time. Like it was, like it was just stuff like that wasn't happening. I have inattentive type. ADHD, okay, so I don't have so much the light bouncing around the room. Classic, what people think of ADHD,
Scott Benner 39:30
you have trouble planning ahead for things,
Anthony 39:33
yeah, just just in terms of focusing, because I was struggling to focus. I was just in the moment, trying to keep on top of what was happening right now. Okay,
Scott Benner 39:42
oh, I see. And what about like if I said to you, your room being your bedroom being messy? Does that bother you or not bother you?
Anthony 39:50
Yes, it would bother me, but I would just sit and you wouldn't do anything about to get up and pick up some clothes. I need to get up and just not do it. I just couldn't. And physically get up and do it is, yeah, it's like, executive function, they call it. It's like, sort of how your brain plans what it's going to do when
Scott Benner 40:09
you actually stood up to clean your room. Are you able to do it to completion? Do you have to, like, set up a process to get it accomplished? Like, how does that work? Yes,
Anthony 40:17
the performance and everything like that. It would not I wouldn't do it until there was some need. So I'd be looking for a shirt or something, and couldn't find a particular shirt. Then I would start picking things up, because I'm looking for the shirt, you know, until that moment, it would just be like extreme procrastination,
Scott Benner 40:35
okay, no matter what. Yeah, and so the outdoors job was probably awesome for you, because it kept changing. It absolutely, yeah, oh, I see. Okay, it kept changing. It's like, literally changes second by second, and you're always moving, always doing something you can't stop, or you're not doing the job. So it kind of overpowers that feeling, yeah,
Anthony 40:54
definitely. And Charco, in a similar way, has been really good for it, too. There's some more planning aspects involved, but especially because it's a Montessori center, it's like child LED. So we're just waiting, following what the child's doing, what their interest is. I can just sort of, I call it following my nose, like I'm not, not sort of like planning or focusing very well. I'm just doing what's in front
Scott Benner 41:18
of me. Is there other ADHD, through your family. Yes, my
Anthony 41:22
sister was recently diagnosed as well, and my parents have never been assessed, but me and my sister always say that they out they have it too.
Scott Benner 41:30
What do your parents do that make you feel that way? From England to Australia, I'm sorry. Move from England. No, go ahead. I'm sorry.
Anthony 41:41
My dad especially has, like, always been, like, very forgetful and like, things like that. But my mom's similar, similar to me, and just sort of loses, like, focus of what she's doing. But they've never, never been assessed or anything. I think it's just, like, a generational thing, isn't it?
Scott Benner 41:57
Yeah. I mean, listen, you made it this far. That's how we think. Yeah, I'm like, I'm 53 I only have to make it 20 more years. What am I doing? I'm gonna get involved with something else
Anthony 42:05
tired. So he's like, it's like, it was the point, right? Yeah,
Scott Benner 42:08
exactly. What medication Did they give
Anthony 42:12
you, as I'm a vivax, yeah, okay,
Scott Benner 42:14
is that heroin? What is that? I forget what
Anthony 42:18
that is. I think they're all like, related to, like, met on the methamphetamines, but I don't know exactly
Scott Benner 42:23
to the makers of Vyvanse. I don't think there's heroin in your medication. I
Anthony 42:27
don't know what it is. No, I don't think it's quite like that, is it? Yeah, I
Scott Benner 42:30
am finding out what's in it, though, because it is, like, basically getting you like, it's speeding you up, right?
Anthony 42:36
It's a it's a controlled substance and everything like that. But, yeah,
Scott Benner 42:40
is there any downside to it? No, there hasn't been,
Anthony 42:43
well, like, not on this. So I started, you know, increasing the doses lucky day. But then I got to a point where I felt like I couldn't get a sentence out without just stumbling over my words. It was just I was starting to go the other way and lose way more focus than you know what I had in the first place? Yeah, that's
Scott Benner 43:02
interesting, yeah. How long if you stopped taking it? How long until you were back to that?
Anthony 43:07
If I miss a day, I notice, like, I'll be listening I was listening to podcasts on the way to work. Like, why aren't I listening to it today? Like, why do I keep missing it? And I'm like, Ah, you're
Scott Benner 43:17
listening to me talk in your car. And you keep thinking to yourself, I'm not following this conversation.
Anthony 43:23
Yeah, oh, that's interesting, exactly. And the problem is, right? I take it in the morning, and it relies on my unmedicated brain remembering to take it.
Scott Benner 43:34
It's a bit of a dirty circle. You're caught in there. Yeah,
Anthony 43:36
yeah. It is a bit of a catch 22 right?
Scott Benner 43:40
So similar to an amphetamine, then, yeah, okay, yeah,
Anthony 43:44
it's a stimulant. That's the word the stimulant. Yeah.
Scott Benner 43:47
Wow, interesting. Did your partner go on it as well? Yeah, he
Anthony 43:51
tried by vans, but he felt like it was just fading by the afternoon for him. So now he's on Dex. I don't know what Dex or dexamphetamine, right? Dexamphetamine, okay? Which is like a short acting once he has to take it throughout the day. Gotcha,
Scott Benner 44:06
I thought you're gonna say he just went to meth. I thought you're gonna say, but no, do your friends try to buy them from you? Some
Anthony 44:14
of them have joked about, I think, I think some of them would have
Scott Benner 44:20
like, I'm just trying to focus here. I gotta drive to work and these kids. So instead of reacting to the kids now at work, you're proactive about it,
Anthony 44:29
yeah, and stuff like, they call it like, responsible person for the afternoon and just planning, like, closing down the rooms and that sort of jobs and routine sort of stuff, I feel like it's helped a lot with, and I'm also studying as well, so it's definitely helped.
Scott Benner 44:46
I wonder what the opposite of ADHD is.
Anthony 44:48
Opposite of ADHD? I'm not sure, because when
Scott Benner 44:51
I'm in a room, like, if you put me in a room with four people and a radio show where three people were talking to each other, I'd. What everybody was talking about, and it's been like that my whole life, not at all like, Anthony's like, I don't know that experience. Thank you. Yet I'm a person who, like, I'm gonna get an email now somebody's gonna be like, Oh, Scott, you have ADHD. I listen to this podcast, and I know you do. Yeah, I don't think I do, but it's interesting. Like, because like, I like it is interesting. I like telling stories out of order. I think it's more engaging that way. Like I said to somebody the other day, they said, I'm so sorry. I felt like I was all over the place, like, while I was recording, I said, No, I took you in those directions, like, you didn't do that. I did that to me. It's like Pulp Fiction storytelling. And of course, this
Anthony 45:40
person, like, that's just the story. It's just, it is just all over the place. That's what it is. Yeah,
Scott Benner 45:44
right, right, right. Like, and she, of course, this person is too young to have ever seen Pulp Fiction. It made me upset. I told her about that. I've never seen it either. Sorry. No, it's fine. But in my mind, John Travolta is alive. He's dead, and he's alive again in the storytelling. And you have to be able to figure out that, like, there's different story lines happening, and you're in different timelines in those storylines, yeah? And I have no trouble with that, and I think that's interesting. So I do that with the podcast. Like I take you somewhere, then I bring you back, and then I take you somewhere else, and we go backwards again. I just find it more interesting than speaking linearly about things,
Anthony 46:18
because, yeah, interesting, doesn't that? Yeah, yeah. I don't
Scott Benner 46:22
want your story to feel like you're reading from a bullet list of like, here's what happened to me over the last three years.
Anthony 46:27
Yeah, no, that's all. That wouldn't be interesting, would it? Yeah, I don't think anyone would listen to
Scott Benner 46:32
that. No, no, it would be terrifying. You just be like, oh God. Like, I want to be better, but I don't want it badly enough to listen to this. To the last thing on your list that I'm endlessly interested in, because I do have a feeling like everyone in your generation wants to have something it's like, Oh, finally, I was diagnosed with something awesome. I can't wait to put it in my profile. What do you mean a possible autism diagnosis?
Anthony 46:56
Yeah. So when I sent you the email, I just left my first psychiatrist appointment after getting their ADHD diagnosis. Okay? And part of the assessment, I guess it also asks some questions that relate to autism. And so as she's going through, she said, Oh, it looks like some of the questions you've answered have marked the autism as well. So we might do an autism assessment. And to be honest, at the time, I thought, yeah, like, that's right, that makes sense. Like, I thought that that might be the case. In the end, she hasn't. Since I've been back to the psychiatry, she hasn't mentioned it again, and I've not brought it up because I don't really see, like, the purpose of a diagnosis for me personally, like ADHD had the purpose of the medication, yeah, but there's nothing like that. Specifically for autism,
Scott Benner 47:48
it's funny, like, I realize I don't understand the entire spectrum of autism. I don't understand the entire spectrum of anything. But like, you know, I don't understand the entire spectrum of it. But like, I've been talking to you for an hour now, and yeah, if at the end of this hour, somebody would have said, By the way, we think Anthony has autism, I'd go not the way I understand that he does. Yeah, no, yeah. I mean, would it? How would it change your life if you were, like, on some thin line at the end of us of a spectrum, you know what I mean?
Anthony 48:16
Yeah, that's sort of why I haven't really pursued the diagnosis, but helping me sort of understand, like myself, I think, has helped and like, yeah, in this conversation, like, you wouldn't be able to tell I'm autistic, but it's very like, situational for me. I think if I were at the shops and it was like, loud and it was beeping and everything that's at the shops, and you're the cashier, you might be able to tell, like things like that, or if like you said, you could follow that, like that conversation between multiple people. I've never been like able to follow group conversations. Yeah, all through high school, I was no of just not really talking much at lunch and things like that, because I just sort of would zone out and sort of just the overwhelm of all the noise and lots of people talking at once. Does it impact your life? Poorly? It hasn't, in some ways. Yeah, I think it like things take more of a toll than they otherwise would. Now I'm like very deliberate to try not to have more than one thing, social thing happening in the on the weekend, on any given weekend, you know? Okay, I try not to, like, see one group of friends on Saturday and see another group of friends on the Sunday, because I'll just be exhausted for the rest of the week. I'll just be feeling really like, Oh, I'm feeling so low. Yeah. And then I realized, oh, yeah, busy
Scott Benner 49:41
weekend. Do you feel introverted or no? Yeah, definitely feel
Anthony 49:45
introverted, but I can come across as extroverted, like in some situations, like if I sort of make myself do it for some reason working, if I'm working, it's easier to just be bubbly, like I've done I've worked in customer service and and obviously. Working with kids now I can be out there and stuff like that at work, right? Yeah, it's
Scott Benner 50:06
interesting, because
Anthony 50:07
it's interesting. But you
Scott Benner 50:09
look at people on their social media and it's like, forever, they're like, Oh, that's my trauma, that's my autism, that's my anxiety, that's how I'm like, oh my god, you guys. Like, maybe you're just quiet and you just don't like loud noises. Like, why? We gotta call it something. But I know that's just me being old, so
Anthony 50:25
I get that. I think it's like, like, like, growing up without knowing it. And the same with ADHD too. It's sort of, you sort of start to feel like, well, why can't I just do that? Like, why can't I just talk to people in a group, why can't I just pick up stuff off my floor in my room? Why can't I just do my homework like everyone else does that? What's wrong with me? And then having the this is label and be like, it's not you're just lazy, it's not you're just dumb. It's Oh, you actually have something that's different in your brain that's making it out of you. You know, that's,
Scott Benner 51:01
yeah, well, I appreciate that. I take that point, like, strongly, because I will even I'll tell you, like my kids, like, I'll tell them, like, Hey, listen when I was a kid that was just a dumb person, or, like, you know, when I when I was a kid that was just a lazy person, or when I was a kid that was just the this person or that. So maybe even understanding it is for you, not so much for fixing it, because maybe there is no fixing who you are, like, but yeah,
Anthony 51:24
definitely, especially with like, the autism. So obviously the ADHD has the medications, but I think the main thing for the autism is just understanding it yourself, and that's why I haven't really saw a diagnosis, and I've talked to it a little bit, to the psychiatrist about if I haven't really saw particularly therapy for it, because the best thing for me has just been to be like, No, you just have to be conscious about how you look after yourself. Like,
Scott Benner 51:47
yeah, right. And that is valuable for you, especially because you've taken the Vyvanse, you've taken insulin. Like you do need to be on top of those things, yeah, yeah, exactly. But so many people come on and talk about like, ADHD or anxiety, and they also have type one in their lives. Like, yeah, I genuinely don't, like, obviously, I don't know anything. I just, I bought this microphone, like, a decade ago, I'd have to go start another podcast and talk to a bunch of people who have no autoimmune in their life, and ask them if they see a bunch of anxiety in their and stuff. But, but it feels, it just feels like either everyone's anxious, or this maybe lives around autoimmunity somehow,
Anthony 52:25
yeah, I do. I do wonder if it's related, hey, and there has, there's been sort of demonstrated relationship with like me, with ADHD and autism, and with Ehlers, danlos and things like that. And I hear a lot of that on the podcast as well around what I mean. So I wonder if it's not just, yeah, no,
Scott Benner 52:43
plenty of, plenty of y'all got the, like, super stretchy joints and the pain in your like places, and it's not always. Ra never
Anthony 52:49
been diagnosed with anything, and when I tried to bring it up with a doctor, I just got the whole sort of, you're young and healthy, but I've always had, like, creaky, achy joints, and I can overextend, sort of my knees and my fingers a little bit. So, yeah, I do wonder if I've got it. No.
Scott Benner 53:04
Arden has that for sure. She can kind of stretch in ways she can even my son, like, you know, throws a baseball like, very fast. And when you look at how it happens, like, in slow motion, it's because his body extends in ways that, like, I don't think other people's do, you know, listen in the end, Anthony, like, there ain't nothing you're gonna do about it. Like, this is just how it is. Like, there's, this is the modern version of being, you know, born with one leg that's an inch shorter than the other one. Like, you just gotta keep going, you know, there's, yeah, exactly, yeah. No one's gonna come along and, like, flip a switch or give you a pill and be like, Oh, it's all fixed Exactly. Maybe they will one day, like, I mean, that'd be awesome. Like, if one day they could just plug you into a computer and be like, like, oh, that works a little too much that way. This a little too much this way. And, like, throw some sliders around and fix it up for you. But, I mean, at the moment, I do take your point though, like, knowing has got to be comforting.
Anthony 53:55
Yeah, definitely, yeah. Definitely has helped. Just, just Yeah. And I definitely like, like, being diagnosed as an adult, you should go back and just re examine all of your life being like, oh, that's why that was I was like that in school, you know, like, is
Scott Benner 54:12
that why I was crying at that roller rink? And, well, yeah, I mean, there's, listen, it's very worth looking backwards, right? Like, to try to figure things like that out. Yeah, you know what made you upset? Or, you know, why did you treat somebody a certain way, or treat yourself a certain way? All right, I take your point like it's okay. You guys can keep labeling yourselves. It's all right with me, you talked me into it, Anthony, I wondered about the with you, with ADHD undiagnosed at some point, your partner in the same situation, then you're medicated. He's medicated. Has your relationship changed?
Anthony 54:46
Yeah, I think it has definitely. And with type one as well, I think we're both sort of more able to be more conscious and sort of more present with each other and how we work on our relationship and pre that. Hypnosis when I was obviously not feeling well. I just would come home from work and I would just lay on the couch and just just veg out and just watch TV, and we wouldn't really have much holiday time together. And I think that that sort of took a toll on the relationship a little bit, but being sort of medicated with the ADHD now, we're able to sort of talk about it more, and, like lots of ADHD sort of struggles, is, like, even noticing that there's a problem so stuff like that, we're able to sort of like, hey, we haven't, we haven't hung out much this week. Let's, let's play ball game, or let's watch something on telly. Or, yeah, yeah.
Scott Benner 55:38
How about just with, like, your personalities, like, because at some point, if you're just, like, jumping from thing to thing, or not really focused on stuff, and then now suddenly you are, are you? Is it almost like you're different people getting to know each other again?
Anthony 55:53
Yeah, in a way, yeah, yeah. We're able to ADHD. People with ADHD are, like, infamous for just jumping from hobby to hobby to hobby, and not putting any sort of like, actual like effort into maintaining one of them. But we've been able to sort of like, actually work on like interests and find new ones together. We've both gotten really into board games together, so we've been doing that a lot Nice.
Scott Benner 56:16
Yeah, that's awesome. Cool. You guys think you'll get married? Yeah, we're getting married in July. Oh, for my birthday, you're saying on the 31st Oh, could you move it to the 12th and say it was for my birthday? That's awesome. Congratulations. That's lovely. Yeah. What does he do for a living? He has just
Anthony 56:34
started working at a new job. He works in bar housing now.
Scott Benner 56:38
Okay, you guys have a place together? Yeah? Yeah, we got a place together. Oh, nice. That's lovely. Look at you right now you can have the hell that we, all the rest of us, have, after you
Anthony 56:47
get married. That'd be nice.
Scott Benner 56:50
Hey, listen, it took decades to get that right now, you go ahead out there and be miserable with the rest
Anthony 56:57
of us. That's it. We fought for that ride.
Scott Benner 57:02
Enjoy it. You're gonna love it. Super awesome. Last night, my wife laid down next to me and said, rub my calf. Then she flipped over and went other one. And I was like, Oh, awesome. This is great.
Anthony 57:16
Yeah, that's That's it married life. My gosh,
Scott Benner 57:20
is there anything that we haven't talked about that you wanted to there was
Anthony 57:23
one more thing that I didn't get with the diagnosis story that I don't think I've heard on the podcast, okay yet, but for like, weeks before I was diagnosed, the toilet was just growing mold, just we cleaned it like, like, every week, and then straight away it would just be black again. And we're like, what's happening with this toilet? Like, do we need to get a plumber in? Like, and we live in in Queensland, Australia, it's very humid, and mold is just a fact of life here, right? But it was just relentless. And after I started insulin, it just stopped. Yeah, because
Scott Benner 57:58
you were putting glucose into the toilet, yeah, yeah, because they're just feeding it wasn't I like, Yeah, I'll make my own petri dish. Yeah, yeah. People
Anthony 58:07
ask me about symptoms, and I Well, oh yeah.
Scott Benner 58:09
Nobody's ever I guaranteed it. Now that you said that, people are going to start talking about it all the time. Yeah.
Anthony 58:15
I've just never, not one that I've never heard. Hey, I
Scott Benner 58:18
wonder if anybody's ever said that before. I mean, I feel like they haven't. It's interesting. Yeah, you were creating your own, like, like, little petri dish in there, yeah, and the sugar was feeding the bacteria and the mold, and that was supposed to happening. Oh, that's and how long do you think that went on for
Anthony 58:33
bleaching it and, like, scrubbing it, and we tried everything, and then it would just back again in a couple of days. Yeah, I'm glad
Scott Benner 58:40
you cleaned it, because there was part of me that thought, like, before the ADHD meds, they were probably like, it grew out like a like, a mountain out of the top of it. We just peed around it.
Anthony 58:50
Yeah, well, I think, I think growing things in the toilet, sort of the urgency of over the procrastination, we're able to clean it.
Scott Benner 58:59
That's so crazy, because there's like, all kinds of, like, bacteria and microorganisms growing in there, and you're feeding it with the sugar and like, oh, that's disgusting. When you really think about it, it's horrible. Can we call your episode extra dirty toilet? Also, let's see high blood sugar leads to sugar in the urine. Obviously, we know that sugar is a nutrient source can serve as a substrate for the growth of various microorganisms, including bacteria and fungus. Oh,
Anthony 59:30
fun, yeah, lovely, isn't it? Yeah. You
Scott Benner 59:34
ever heard that one story where the adult says that the way her mom figured out she was like a baby when she was diagnosed, they found her drinking out of the toilet. I did, yeah, I bet you were thinking, thank God I didn't drink out of my toilet. Yeah, definitely,
Anthony 59:47
definitely, not going anywhere near that. But I'd rather be growing mold and bacteria in the toilet than drinking yeast infection and in the body, right? Yeah.
Scott Benner 59:58
I mean, that's not a tough. Sophie's Choice there, I definitely would pick the dirty toilet over the drinking from the toilet. You know, what a way to illustrate that what the thirst must be like when you take a person who can't ask for a drink, seeks it out like that. You know,
Anthony 1:00:13
that's what it's like. And I thought I was doing great. I was like, Look at me. I'm like, bringing all of this water with me to work. And I had, like, a camel back and massive, like, bottle. I
Scott Benner 1:00:23
wonder how many undiagnosed type ones have a giant water bottle in their cabinet that they don't use anymore because they were they're just like, Oh, I'm finally drinking the water. They tell me about this is great. God, all right, well, I'm gonna let you go to sleep, because I know it's like one o'clock in the morning there, and I appreciate you doing this very much. I love it be great. Thank you. Yeah, no, I love it when, when you guys from Australia, come on, it's, it's so good. You just have a different vibe that I really enjoy. So thank you definitely. Thank you. No, it's my pleasure. It really is. Hold on one second for
me. You today's episode of The Juicebox Podcast is sponsored by the Dexcom g7 and the Dexcom g7 warms up in just 30 minutes. Check it out now at dexcom.com/juicebox,
the podcast you just enjoyed was sponsored by tandem diabetes care. Learn more about tandems, newest automated insulin delivery system, tandem Moby, with control iq plus technology at tandem diabetes.com/juicebox there are links in the show notes and links at Juicebox podcast.com Hey, thanks for listening all the way to the end. I really appreciate your loyalty and listenership. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. If this is your first time listening to the Juicebox Podcast and you'd like to hear more, download Apple podcasts or Spotify, really, any audio app at all, look for the Juicebox Podcast and follow or subscribe. We put out new content every day that you'll enjoy. Want to learn more about your diabetes management. Go to Juicebox podcast.com up in the menu and look for bold beginnings, the diabetes Pro Tip series and much more. This podcast is full of collections and series of information that will help you to live better with insulin. Hey, what's up, everybody? If you've noticed that the podcast sounds better, and you're thinking like, how does that happen? What you're hearing is Rob at wrong way recording doing his magic to these files. So if you want him to do his magic to you, wrong wayrecording.com, you got a podcast? You want somebody to edit it? You want rob you?
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