#1760 Boston Croissant Party - Part 2
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In the conclusion of this two-part discussion, Anais, a scientist in the biotech industry and mother of a seven-year-old daughter with Type 1 Diabetes (T1D), shares further insights into the first year of management, the emotional weight of grief, and the transition of care as children grow older.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner (0:0) Welcome back, friends, to another episode of the Juice Box podcast.
Anais (0:13) My name is Anais, and I am the mom of a type one diabetic child. (0:18) I have two daughters, seven and four and a half, and so my diabetic daughter is the one that just turned seven today. (0:25) It's her it's her birthday.
Scott Benner (0:27) This is part two of a two part episode. (0:29) Go look at the title. (0:31) If you don't recognize it, you haven't heard part one yet. (0:33) It's probably the episode right before this in your podcast player. (0:39) If this is your first time listening to the Juice Box podcast and you'd like to hear more, download Apple Podcasts or Spotify, really any audio app at all.
Scott Benner (0:48) Look for the Juice Box podcast and follow or subscribe. (0:51) We put out new content every day that you'll enjoy. (0:55) Wanna learn more about your diabetes management? (0:57) Go to juiceboxpodcast.com up in the menu and look for bold beginnings, the diabetes pro tip series, and much more. (1:04) This podcast is full of collections and series of information that will help you to live better with insulin.
Scott Benner (1:12) While you're listening, please remember that nothing you hear on the Juice Box podcast should be considered advice, medical or otherwise. (1:20) Always consult a physician before making any changes to your health care plan or becoming bold with insulin. (1:29) Today's podcast episode is sponsored by Medtronic Diabetes, who is making life with diabetes easier with the MiniMed seven eighty g system and their new sensor options, which include the Instinct sensor made by Abbott. (1:44) Would you like to unleash the full potential of the MiniMed seven eighty g system? (1:48) You can do that at my link, medtronicdiabetes.com/juicebox.
Scott Benner (1:53) The podcast is also sponsored today by the Kontoor Next Gen blood glucose meter. (1:59) Learn more and get started today at kontoornext.com/juicebox.
Anais (2:05) I mean, you have to be a little bit brave. (2:08) I mean, I don't know if I'm if I'm there yet. (2:09) I mean, I I guess I'm on the podcast. (2:11) But
Scott Benner (2:12) No. (2:12) You're getting there. (2:12) Yeah. (2:13) No. (2:13) No.
Scott Benner (2:13) That's that's pretty good stuff.
Anais (2:15) But I think there is you know, work is there is stuff that should stay private, obviously, but I think it's good that they they're trying to improve, mental health because that's super important for sure.
Scott Benner (2:26) Nice people. (2:27) A lot of people working hard in a new world where some of them are, like, working out of their house and never see each other and, you you know, and some of them are are getting dragged into a building and and there's no one there. (2:38) So they're basically working by themselves in an office. (2:40) You know? (2:41) It's a and and like and like we said earlier, they all also have bills and problems of their own and spouses and children and you know?
Scott Benner (2:50) Like, every day somebody asks me, how how are you? (2:52) And I'm like, I have two kids, and I'm married. (2:54) I don't know. (2:54) Like, I get it.
Anais (2:58) Depends. (2:59) Depends on the day. (3:00) Is it Monday? (3:00) Is it Tuesday? (3:01) Who knows?
Anais (3:02) No.
Scott Benner (3:02) Some days, everybody's happy, and some days, people I love are yelling at me. (3:06) I don't know what's happening. (3:07) I I I can't follow this. (3:08) Oh, also, you know, try being me sometime. (3:11) Like, I mean this, like, from an outside perspective, not as a, like I'm I'm not celebrating myself, but I am a person who a lot of people would come to about diabetes stuff whose daughter doesn't see him that way.
Scott Benner (3:23) Right? (3:24) Like, I'm to me, the I'm the guy in the house. (3:26) Like, you don't listen to me. (3:27) Like, you don't send like, listen. (3:28) Here's a great piece of advice for everybody.
Scott Benner (3:30) I've said this a million times. (3:31) Yeah. (3:32) You shouldn't coach your kid in baseball. (3:34) And if you do and he's pitching, you're definitely not the one that goes out to the mound to talk to him when he's struggling. (3:40) Right?
Scott Benner (3:40) Like, that's just trust me. (3:41) That's great advice. (3:43) And it's the same thing with this. (3:44) Like, I spent three hours on the phone with a friend of Arden's the other day, and she was we got to the end, and she's like, thank you so much. (3:51) She's like, I just learned more about myself than I've learned in ten years, like, because her friend has type one.
Scott Benner (3:56) And Uh-huh. (3:57) If I turned to Arden, I was like, hey. (3:58) There's, like, five key things I'd like to see. (4:00) Be like, get away from me.
Anais (4:02) Yeah. (4:03) I mean yeah. (4:04) But you you're you're her dad. (4:05) Right? (4:06) So it's yeah.
Anais (4:06) Totally.
Scott Benner (4:07) I can see how into her differently. (4:09) Like, do you know what I mean? (4:09) Like but, like, still, it's I mean, that's a thing that I deal with. (4:15) Like, you know, and I'm saying people people are dealing with all kinds of little things that, you know I mean, that's the thing that makes me upset. (4:23) Like, I'm I'm just to be honest with everybody.
Scott Benner (4:25) I wish that my daughter cared to sit down and listen to the pro tip series. (4:31) You know? (4:31) Because not
Anais (4:32) that She hasn't.
Scott Benner (4:33) Not that she
Anais (4:33) She hasn't done that.
Scott Benner (4:34) No. (4:34) She knows most of it from my, like, incessant talking about it with her. (4:38) But, like, at the same time, like, I didn't wanna be the one to say it to her. (4:42) It's a weird mix to be. (4:44) You don't trust me.
Scott Benner (4:44) You won't know till you're there.
Anais (4:46) Oh, yeah.
Scott Benner (4:47) But you'll be there at some point. (4:49) She you know? (4:50) So good luck, by the way. (4:51) Ain't it great?
Anais (4:52) Yeah. (4:52) Thank you. (4:53) Yeah. (4:53) I am you know, it's it's funny because, I mean, obviously, my daughter is seven, so we do most of the management. (4:58) And she's she gets involved, and she's much better now with changing her device and all that good stuff.
Anais (5:04) I can see how as she evolve and become a teenager, there will be, you know, moments that are tough, and she's gonna take over the management. (5:13) I'm gonna have to let go. (5:14) I'm a type A person as well, so it's gonna be really hard for me
Scott Benner (5:18) Yeah.
Anais (5:18) To let her do her thing. (5:19) But I think at the end of the day, it's probably what she needs to do. (5:23) But, yeah, I can see all that super challenging. (5:24) We we're not there yet. (5:25) I feel like I have a few more years to
Scott Benner (5:27) You have plenty of time. (5:28) But just I'm just I'm here to tell you, it's just not gonna go the way you think.
Anais (5:32) Oh, yeah. (5:32) I'm sure.
Scott Benner (5:33) And I've never been more certain of this. (5:36) People want what they don't have. (5:38) Like, you know, I'm talking to her friend, and her friend's like, nobody ever helped me when I was growing up. (5:42) This is awesome to have somebody here helping me. (5:43) And I'm sure what my daughter thinks is, oh my god.
Scott Benner (5:46) You've been helping me so much. (5:47) Leave me alone. (5:48) Like, right like, like, everybody wants the opposite of what they get handed. (5:52) And so I think that you're not wrong, and it's a it's a lifelong thing of the passing of the information in such a way that in real time, they're healthy and safe and learning. (6:07) But at some point, it's gonna just sound like, oh, I can't believe that these people this is all they talk about, which by the way, and this will be hard for you to believe because you listen to my podcast about this, but I don't talk about this stuff much at all in my personal life.
Scott Benner (6:23) But the people around me think I talk about it all the time. (6:27) Yeah. (6:27) And it's because they don't wanna hear it from me. (6:30) It's a it's not about this. (6:31) It's not about the podcast.
Scott Benner (6:32) It's not about diabetes. (6:33) It's it's anything. (6:34) Like, you all right now are thinking about something. (6:37) Everyone listening is like, my god. (6:38) My mom always talks about knitting or my dad's always talking about the jets or, like, you know, like, that kind of thing.
Scott Benner (6:44) It's not true. (6:44) That's not what people are always talking about. (6:47) It's just the thing that you hear, I guess. (6:50) I'm not fully able to explain this whole thing yet. (6:53) I think a fair amount of the podcast over the next couple years is gonna be me, like, continuing to figure all this out.
Scott Benner (7:00) But I've been letting go for years, and I've been, you know, staying out of it for years. (7:07) And still, if you talk to her about it, she thinks I'm she thinks that's all I'm talking about. (7:12) It's really interesting.
Anais (7:13) That's so funny. (7:14) Yeah. (7:14) We'll see. (7:15) We'll see how it goes. (7:17) Yeah.
Anais (7:17) It's gonna be an interesting time.
Scott Benner (7:18) Well, also, good point. (7:20) Everyone's different. (7:20) Your kid might just be like, I don't know. (7:22) They helped me a lot. (7:23) It was awesome.
Scott Benner (7:23) And then that'd be it. (7:25) You know? (7:25) Like, who knows how people take it? (7:27) Don't don't panic yet. (7:28) There's plenty of time before I just realized
Anais (7:31) plenty of episode can listen to where you talk about that. (7:33) So that's good. (7:34) I'll have some resources.
Scott Benner (7:35) Maybe you can catch up for there. (7:38) So at her age, though, like so is she making decisions? (7:42) Does she count carbs? (7:43) Like, where are you at with that part?
Anais (7:46) She's not well, she understand the concept of carbs, and and I think the concept of giving insulin, pre bowl is saying she's very good about that. (7:53) I think she helps more with, like, device changes because at first, it was super hard for her to do an Omnipod change. (8:00) We had to, like, we watch pretty much all of the Simone Biles routine on YouTube every time we were changing a pod, so she will be distracted. (8:09) And it was just so hard, but now she's like, she take the the the Omnipod off. (8:15) She helps with the the adhesive and all that stuff.
Anais (8:17) So she's much better with with that, but she's not she's not doing the management. (8:22) Sometime if I say, hey. (8:24) Can you put in nine carbs in the the controller? (8:27) Like, she knows how to do it, she will do it properly, But she is not really kind of managing her disease. (8:34) She's she's pretty smart about it.
Anais (8:35) Like, if she goes play at the outside, she would be like, hey. (8:38) What's my number? (8:39) And I'm like, well, you're fine. (8:41) You can just go play. (8:42) Or I'm like, well, you need a schedule to to kind of get you up before you go running like crazy.
Anais (8:46) So she's aware, and I think she generally pretty vocal if she feels low or if she doesn't feel right. (8:54) Like, she will tell us. (8:55) Yeah. (8:56) She's not really involved in a lot of the carbs counting and all that good stuff.
Scott Benner (8:59) Yeah. (8:59) I wouldn't I would imagine. (9:00) It happens slowly. (9:01) It's also you know, you're still figuring it out. (9:03) It's hard to teach somebody something you're not sure of.
Anais (9:06) Exactly. (9:07) Yeah. (9:07) For sure. (9:08) No. (9:08) I was just saying, I think we're getting better because we didn't totally scrub pizza the other day.
Anais (9:12) So I felt like that was her, you know
Scott Benner (9:15) Big win?
Anais (9:15) Her montage to climb. (9:17) And I think we we stayed under one eighty, though. (9:20) Like, that was the maximum she went to after pizza, and I was like, I think we did pretty well this time. (9:26) Hopefully, we do that again.
Scott Benner (9:27) Do you have that moment, like, quietly over the table where you pick up the CGM screen and you show it to your husband and nod at each other like, oh my god. (9:34) We did it. (9:35) Like
Anais (9:35) Yeah. (9:36) Yeah. (9:36) We we yeah. (9:37) It's and we have, like we strategize. (9:39) Like, we we still talk about about about diabetes a lot at at mealtime, and it's like, well, what did we do yesterday?
Anais (9:45) Like, what do you think we should do? (9:46) Is it fifty percent now? (9:47) Like, so yeah. (9:50) Yeah. (9:50) Eventually, it will become easier, hopefully, in this work, but, we're still pretty involved in
Scott Benner (9:56) I mean, I'm personally, me, I'm at the spot where I don't really need to talk about it to make it work. (10:02) And that's that's awesome. (10:03) But it's funny because, you know, because Arden went off to college and she, you know, took over for herself. (10:08) She didn't obviously start at scratch, like, like, from scratch, but she started, you know, behind where where I was. (10:14) And it gets been interesting watching her figure it out.
Scott Benner (10:17) Like, I and she's doing I wanna say, especially if she hears this, she's doing an awesome job. (10:23) Like, she's keeping her a one c in the sixes.
Anais (10:25) Oh, that's awesome.
Scott Benner (10:26) Yeah. (10:26) Like, you know, she's going to college at the same time. (10:29) She, you know, she has a boyfriend. (10:31) She goes out. (10:31) Like, she does a accomplishes she a lot of things.
Scott Benner (10:34) And with an a one c in the sixth, I think that's just astounding. (10:38) Like, I I I mean, it's such a I don't know. (10:41) Such a thing to be celebrated, really. (10:43) You know? (10:44) Especially after interviewing so many people who are like, oh my god.
Scott Benner (10:47) In college, I don't even know what my blood sugar was, or I only gave myself basal insulin for four years in college. (10:52) Like, I hear that stuff all the time from
Anais (10:53) Oh, wow. (10:54) Yeah. (10:54) Yeah. (10:55) I don't know. (10:55) That's crazy.
Anais (10:56) That's amazing that she's doing so well. (10:58) Yeah.
Scott Benner (10:59) It's just hard that when you I don't think she feels it that way. (11:03) And I do believe she it's because to some degree, she knows it's not as good as it has been or that it could be, and yet she's taking a having a lot of pride taking it on for herself too. (11:15) So Yeah. (11:15) It's a real interesting journey.
Anais (11:18) Yes. (11:18) I I was gonna say, like, it's hard because we have a very tight control and, you know, her a was I mean, her a one c, I think our last one was five, and she she's she's doing great. (11:27) But I know that the amount of effort we're putting in, it probably is too much. (11:33) Right? (11:34) So, eventually, I think it's like, where do you wanna be Yeah.
Anais (11:37) And live your life and not worry about it all the time? (11:42) And so I think this is something that I haven't figured out quite yet. (11:46) It's like, you know, we No.
Scott Benner (11:48) You have a lot of time. (11:49) Don't worry. (11:50) Yeah.
Anais (11:50) But it's like, we are constantly working at it. (11:53) So
Scott Benner (11:54) I'll tell you right now. (11:55) From my perspective, there's two things that thwart adults. (12:00) Right? (12:01) And I understand completely why it would. (12:04) It's about attention and it not making you mental.
Scott Benner (12:07) Right? (12:07) And about you trying to live the rest of your life. (12:09) But the two things where people struggle the most as adults, and I've seen it talking to them, and I'm watching it with Arden. (12:16) Pre bolus thing long enough before a meal and readdressing a high blood sugar before it gets over, like, one eighty. (12:23) Yeah.
Scott Benner (12:24) Those are the two things that because they're trying to live their lives, I think that they're trying to be sane. (12:30) You know what I mean? (12:31) That they're they're not focused on all the time. (12:33) Those two things. (12:34) Like, if Arden came to me right now and said, fine.
Scott Benner (12:36) I'll listen. (12:37) What am I doing wrong? (12:38) And I would say, first of you're doing anything wrong, but just focus on these two things a little more. (12:43) I think that would change things for her dramatically.
Anais (12:45) Yeah. (12:46) Yeah. (12:46) So Maybe I should take that advice as well.
Scott Benner (12:49) Yeah. (12:49) As minimally as you can. (12:51) Like, once she knows what she's doing, like, you just want I actually think that the the reason, like, the pro tip series works is because it really is distilled down into just these ideas, and they are the core they are the core ideas that will keep you in a six. (13:07) Right? (13:07) And Yeah.
Scott Benner (13:09) Once you have a lot of them set up, you don't really have to think about them as much anymore. (13:13) And then from there, I saw I really think it's that. (13:16) I think it's don't let a blood sugar go over one eighty and pre bolus. (13:19) And those two things will keep you the rest of the way in it. (13:22) Now maybe a technology will take care of that in the coming years.
Scott Benner (13:25) I have no idea. (13:29) The Kontoor next gen blood glucose meter is sponsoring this episode of the Juice Box podcast. (13:35) And it's entirely possible that it is less expensive in cash than you're paying right now for your meter through your insurance company. (13:43) That's right. (13:44) If you go to my link, contournext.com/juicebox, you're gonna find links to Walmart, Amazon, Walgreens, CVS, Rite Aid, Kroger, and Meijer.
Scott Benner (13:55) You could be paying more right now through your insurance for your test strips and meter than you would pay through my link for the Contour Next Gen and Contour Next test strips in cash. (14:07) What am I saying? (14:08) My link may be cheaper out of your pocket than you're paying right now even with your insurance. (14:15) And I don't know what meter you have right now. (14:18) I can't say that.
Scott Benner (14:19) But what I can say for sure is that the Kontoor Next Gen meter is accurate. (14:23) It is reliable, and it is the meter that we've been using for years. (14:27) Kontoornext.com/juicebox. (14:31) And if you already have a contour meter and you're buying test strips, doing so through the juice box podcast link will help to support the show. (14:41) Unlike other systems that will wait until your blood sugar is a 180 before delivering corrections, The MiniMed seven eighty g system is the only system with meal detection technology that automatically detects rising sugar levels and delivers more insulin as needed to help keep your sugar levels in range even if you're not a perfect carb counter.
Scott Benner (15:02) Today's episode of the Juice Box podcast is sponsored by Medtronic Diabetes and their MiniMed seven eighty g system, which gives you real choices because the MiniMed seven eighty g system works with the Instinct sensor made by Avid, as well as the Simplera Sync and Guardian Force sensors, giving you options. (15:23) The Instinct sensor is the longest wear sensor yet, lasting fifteen days and designed exclusively for the MiniMed seven eighty g. (15:31) And don't forget, Medtronic diabetes makes technology accessible for you with comprehensive insurance support, programs to help you with your out of pocket costs, or switching from other pump and CGM systems. (15:45) Learn more and get started today with my link, medtronicdiabetes.com/juicebox.
Anais (15:51) Yeah. (15:51) Well, the the the bump and nudge one too, I thought, was super helpful because, like, it's like, okay. (15:56) Like, what do I do if I see this hour going up? (15:58) Like, do I wait a little bit? (16:00) Like, you know, being aware of, like, is she gonna go outside and running?
Anais (16:04) Like, that that type of things that maybe in the future technology would take care of. (16:08) But right now, I I saw that thinking about where the arrow is going, what the trend is. (16:14) I I saw that was helpful also to keep in mind Mhmm. (16:16) To stay within a certain range.
Scott Benner (16:19) I think in my mind, the bump and nudge is an expansion of it's not stacking if you need it. (16:25) Like yeah.
Anais (16:26) That's true.
Scott Benner (16:26) Right? (16:27) Like, once you get the idea of, like, oh god, I'm only supposed to bolus once every three hours. (16:31) Once you get that out of your head, and then you realize that it's I I don't know how to put this exactly. (16:40) I think that initially, bolusing for food is taught to you as a thing that only happens once every three hours. (16:47) Right?
Scott Benner (16:47) So the segments are farther apart. (16:50) And then when somebody tells you, well, no. (16:52) Like, if you eat now and then eat again an hour from now, you're gonna wanna bolus for both of those things. (16:57) You go, okay. (16:57) The segments come closer together.
Scott Benner (17:00) But it's not until you, like, go in on them in a micro fashion and start looking at them as not, like, things that happen every three hours, not things that happen every hour, but things that are happening every minute. (17:11) Like, once you see it like that, it's almost like shrinking down and going inside of it for a second. (17:16) Like, once you can see it from that perspective, then you realize, like, it's about timing and amount, but that always changes. (17:23) Now you don't have to watch it down to the millisecond, but if you watch it a little closer than that, you know Yeah. (17:30) Then all of a sudden, you're you're ahead of the the blood sugar.
Anais (17:34) Yeah. (17:34) Right? (17:35) And I and I think the pump really allows you to do those microdose and, you know, bolus for the food even though it's been less than three hours. (17:42) So it gives you a lot more flexibility. (17:44) I think that
Scott Benner (17:45) Yeah.
Anais (17:45) If you have to inject yourself all the time, I think that makes it challenging for sure.
Scott Benner (17:50) Yeah. (17:50) I've met people who do it, but, I mean, I don't know. (17:53) It's a it's a it's a to me, it's I don't know how you go after a a seven year old and be like, look. (17:58) We're gonna we're gonna give you a 1.5 now, and then once you start eating, we'll give you two more. (18:04) And then if this goes up 45 like, I mean, that's, you know
Anais (18:07) Yeah. (18:07) You I I think that would be super hard Sure. (18:09) For her, for sure.
Scott Benner (18:11) You know, for some people, no. (18:12) And for the ones it is hard for, I understand why they're not doing it. (18:15) So once and and, again, I'll I'm happy to say this over and over again. (18:19) It isn't really I understood it all, but I really understood it once I had Nightscout on my phone for Loop. (18:28) Like, because once I watched Loop work in the moment and I was able to say to myself, oh, that's what I've been doing.
Scott Benner (18:35) I've been doing like, because, know, when Arden was in school, I'd be temp Basil off ten minutes. (18:40) Like, you know, I'd send her a text or let's do, temp Basil increase 150% for an hour. (18:47) Like, I was acting like an algorithm like that, and I was really good at it. (18:51) Like, you know and, you know, bolus again here. (18:53) Do another unit.
Scott Benner (18:54) Do a half. (18:55) Like, blah blah blah. (18:56) And it wasn't constant. (18:57) Like, don't get me I I don't want anybody to think I was texting her every five minutes in school. (19:00) But, like, you know, a few times throughout the day, like, in this drill down idea, like, we went from three hours, and I was kinda down to, like, more like every hour.
Scott Benner (19:08) And then most hours, you didn't need to do anything, but then you saw something move, and you could kinda get ahead of it a little bit because it started to move. (19:15) And then I saw the algorithm doing it constantly. (19:19) I saw that loop doing it over and over and over again. (19:22) And I was like, oh, that's how this works so well. (19:25) And that is what I was doing.
Scott Benner (19:26) It's just more micro now. (19:27) Like, it's it's it's finer. (19:30) Yeah. (19:30) Once you understand it, then you can kinda back back out again and then control it in bigger segments, if that makes sense or not. (19:37) But
Anais (19:38) Yeah. (19:38) Yeah. (19:38) Yeah. (19:39) And I guess the pump takes a little bit of that work away from Yeah. (19:42) You, and then you have to figure out.
Scott Benner (19:43) Right. (19:43) And that's where we are right now in the in the zeitgeist with all this, which is the people of now I I watched it happen online the other day. (19:50) I did not have the energy to jump into it, where people are like, the thing doesn't work. (19:54) It's not doing what it's supposed to do, and I'm like, you are not doing the things it needs you to do. (19:59) And and, like like right?
Scott Benner (20:00) So, like, you're acting like I put it on. (20:03) I turned it on. (20:05) Why is my blood sugar not 95 all day long?
Anais (20:08) Yeah. (20:08) That doesn't work that way.
Scott Benner (20:10) And I'm like, well, you didn't pre bolus. (20:12) I know that. (20:12) I can see that. (20:13) Right? (20:13) You didn't do this.
Scott Benner (20:14) You watched this thing go up for an hour and a half. (20:16) You didn't do anything about it. (20:17) Well, they're sitting there thinking, well, it's been going up. (20:19) Why won't the thing stop it? (20:20) And I'm just because the settings and the situation don't match up.
Scott Benner (20:25) It believes through settings that it's doing the right thing and that this shouldn't be happening. (20:30) And so, you know, when people don't understand how it works and they want it to just be magical, that becomes a different problem again. (20:40) Yeah. (20:40) I think a lot of people are gonna need to learn that lesson in this time period with these devices. (20:45) So
Anais (20:46) Yeah. (20:46) I mean, maybe one day, but not now. (20:48) That's for sure. (20:49) Yeah. (20:49) That's for sure.
Anais (20:50) You still have to put on some work, into
Scott Benner (20:51) that. (20:52) Exactly.
Anais (20:52) But yeah. (20:53) Yeah. (20:54) So I guess I don't know. (20:55) I mean, I know we're over time. (20:56) So I'm just
Scott Benner (20:57) You're fine. (20:57) Listen. (20:58) I mean, you you can keep talking. (20:59) I can keep talk. (21:00) I just make a podcast, so I'm good.
Anais (21:02) Oh, right. (21:04) No. (21:04) But I you said something about school management, and I think that's something also that the first year, you know, we rely on a school nurse. (21:11) And and she's a wonderful person, but I think she has a a very different way of managing that we do, and she also has there is four type one kids at the school and so and one nurse. (21:23) And so she has to make sure that they're all stay alive all day.
Anais (21:26) Right? (21:26) And they all do recess, they all do pee. (21:28) And and so, you know, at first, like, she was running. (21:33) I mean, I'm sure she run the other kids pretty high, but, like, she was running my daughter pretty high. (21:37) And so there is a lot of back and forth that goes in, hey.
Anais (21:41) Texting the nurse and being like, hey. (21:42) She's going up. (21:43) Like, it's been a while. (21:44) It would be nice if you could just do a little bullish here because we're not comfortable with her being, like, at two hundred. (21:50) You know?
Anais (21:50) And and so there has been a lot of adjustment. (21:54) And I think most of the time, she she does a good job. (21:56) And, honestly, I would lose my mind if I had four team type one kids to manage. (22:01) But it's true that she it's it's sometimes frustrating when someone has a very different approach and, like, the pre bolus is a little short and the correction are a little bit aggressive when, you know, there is a low because she wants to make sure the kids are safe. (22:16) And so so that has been a challenge.
Anais (22:18) And I think when my daughter is able to manage on her own a little bit more, I think you had mentioned in in several episode that you were just texting with Arden, and she was doing a lot of the management that way. (22:31) So I'm really looking forward that stage because I think we'll be it will be a little bit easier.
Scott Benner (22:37) Yeah. (22:37) You're you're thinking you're gonna loop her into this as soon as possible and and take the nurse out of the the moment to moment?
Anais (22:46) I think she's not ready for that, but I think when she is, it will it probably be a little bit more straightforward to manage with with my daughter. (22:53) I mean, I don't know, like, when she will be ready to do that, but I think it I know that some kids in fifth grade are already kind of taking care of, you know, bullicing and all that stuff, texting with their parents. (23:06) So I feel like that's probably the the age where we'll try to transition to her managing a little bit more. (23:12) Yeah. (23:13) But, yeah, I think it's challenging.
Anais (23:14) Like, the day to day and the schedule at school is really not very well suited for a kid with a kid with type type one for sure.
Scott Benner (23:23) Mhmm. (23:23) No. (23:23) No. (23:23) I think in you'll find out. (23:25) I don't know if there's a certain age.
Scott Benner (23:27) You'll I think you'll see where it works for her. (23:30) You know what I mean? (23:30) Like, you'll see where she's ready for it. (23:32) But I agree that, you make a great point. (23:35) The nurse is doing an awesome job.
Scott Benner (23:37) Right? (23:37) And and it's a tough one at that. (23:39) But at the same time, taking out the gaps and, you know, the time it takes to accomplish something. (23:45) You know, hey, can you please bolus because this is happening when you knew twenty minutes ago you wanted to use insulin. (23:51) Yeah.
Scott Benner (23:52) If it would be just as easy as like, hey, sweetie. (23:54) Like, let's just do a half a unit right here. (23:57) And and she could pick up a phone, push two buttons, and be done with it again. (24:02) Then Yeah. (24:02) You save that forty five minutes that that, you know, that you never go up to 200.
Scott Benner (24:07) You never end up having to do more later getting low because of that. (24:10) Like, I it's a great texting is, as far as I'm concerned, diabetes parenting, texting is maybe one of the most important tools for management.
Anais (24:20) Yeah. (24:20) Yeah. (24:21) Oh, yeah. (24:21) I can see that. (24:22) I so so I think, eventually, that's where we'll go.
Anais (24:26) But, yeah, it's just difficult when there's a lot of different people managing your kid's diabetes. (24:31) Everybody's different. (24:32) Everybody has a slightly different level of comfort with lows and highs, and I'm, like, an anti high person. (24:39) I would if I could have her always under one forty, I'll be, like, so happy, but that's not realistic. (24:45) And I'm more comfortable.
Anais (24:47) Like, I don't like when she goes lows, and she almost never goes low because we always try to avoid when we see a down arrow, which is microdose skittles. (24:54) But if she goes low, like, I know they have a lot of different tools that I can reach for before it gets too low. (25:01) Mhmm. (25:02) So I know, like, this this arrow is going down very quickly. (25:04) She's been running.
Anais (25:05) Like, this is a gel situation, but maybe this situation is like a gummy. (25:10) And so I feel like you have a lot of different doses that you can reach for and and vehicle to get sugar into her that, I'm more comfortable with that than when it's high. (25:21) It takes forever to get her down. (25:23) Yeah. (25:23) So that drives me crazy.
Scott Benner (25:25) Yeah. (25:26) No. (25:26) And and to be perfectly honest, but this is a thing I find myself saying all the time, but diabetes takes the effort it takes. (25:32) You're putting in a lot of effort whether you're doing it and keeping the blood sugar from spiking or letting it spike and then bringing it back down again. (25:40) I think it's less effort to keep it from spiking than it is to fight with it after it has spiked.
Scott Benner (25:46) Right? (25:46) So Yeah. (25:47) Yeah. (25:47) I always think, like, people are just putting their effort sometimes in the wrong place on the clock. (25:52) You you know?
Anais (25:53) Oh, for sure.
Scott Benner (25:54) Yeah.
Anais (25:54) For sure. (25:55) I mean, when you're high, it's yeah. (25:57) It it's a journey to get down. (25:59) Yeah.
Scott Benner (25:59) Do you wanna spend two minutes with it here at 9AM, or do you wanna spend two hours with it at 11AM? (26:05) Yeah. (26:06) That's the way I think about it. (26:07) And I just I think being proactive listen. (26:10) Being proactive in life in general is is valuable.
Scott Benner (26:13) But, like, you know, doing it in diabetes, I think it just saves you a lot of a lot of time and a lot of mental focus that you could be
Anais (26:20) put put
Scott Benner (26:20) on something else. (26:21) You know?
Anais (26:21) For sure. (26:22) Also, a lesson that we learned in the first year.
Scott Benner (26:24) Good. (26:25) Good. (26:25) Good. (26:25) Good. (26:25) I'm glad.
Scott Benner (26:26) Listen. (26:26) Earlier, did I mishear you, or did you say that your daughter watches Simone Biles videos while you're changing her stuff?
Anais (26:32) She does.
Scott Benner (26:33) That would be She's Okay. (26:35) I wasn't sure if, like, for because of, like because your accent's not, like, not I mean, you speak very clearly. (26:40) Like but I it it went by so quickly. (26:43) I'm like, did she say Simone Biles?
Anais (26:45) Yes. (26:46) I did. (26:46) She she does gymnastic, and she's a huge fan of Simone Biles. (26:50) And she was I mean, she was so scared of the pump, like the Omnipod, you know, when it gets in, like the cannula gets in. (26:57) Mhmm.
Anais (26:58) And she was crying so much, and I was like, okay. (27:00) Like, let's watch a YouTube video. (27:01) And for some reason, I was like, oh, you love gymnastics. (27:05) So I I put on gymnastic on YouTube and, you know, Simone Biles' routine comes in. (27:10) And she's, like, mesmerized, obviously, because Simone Biles is awesome.
Anais (27:15) And so we've spent probably, like, the first three months on the pump watching in, like, reruns and of Simone Biles' routine, during pump change. (27:26) So she's seen, like, the floor routine at the Olympic, like, probably a million time. (27:30) Right. (27:30) But it's it's pretty cool.
Scott Benner (27:32) So Let me give you a little something that you can do. (27:35) So Charlotte Drury, who is an Olympic trampoline ist is trampoline ist the word? (27:41) She's been on the podcast, but she has type one diabetes.
Anais (27:43) Oh, okay.
Scott Benner (27:44) So if you ever wanna watch her bounce for that, and as a bonus, her girlfriend is Laurie Hernandez.
Anais (27:51) Oh, no way. (27:52) Yeah. (27:52) That's awesome. (27:53) Okay. (27:53) Yes.
Anais (27:54) We definitely need to check that out. (27:55) That that'll she's gonna be super excited about this.
Scott Benner (27:58) I thought that might help a little bit. (27:59) Yeah. (27:59) Yeah.
Anais (27:59) So Thank you.
Scott Benner (28:00) Yeah. (28:00) Charlotte's awesome. (28:02) Charlotte's been on the podcast. (28:03) I don't know if Laurie jumped on at the end or not or if it was a conversation we had privately, but she was delightful too. (28:08) But yeah.
Scott Benner (28:08) Yeah. (28:09) So if you want, you know, Charlotte has type one. (28:12) So you can, show her her some of her trampoline routines.
Anais (28:15) Oh, yes. (28:15) That would be great because she sometimes she's a little bit embarrassed, like, at gymnastic because she has her devices hanging out, and people are usually pretty nice. (28:23) You just say, I'm tired to to answer questions. (28:26) Everybody always asks me the same question. (28:27) Why do I have a device?
Anais (28:29) And I have to explain to them they have diabetes, and I'm like, I'm sorry. (28:31) I think it's gonna be for the rest of of your life, honey. (28:34) But so it's nice to see other people that have devices as well.
Scott Benner (28:37) Well yeah. (28:38) And let me say this, and this is something you're obviously, her mom, you'll do what you want, but she doesn't have to explain it to them if she doesn't want to.
Anais (28:45) Yeah. (28:45) That's true.
Scott Benner (28:46) Yeah. (28:46) So, I mean, she needs to it's it's tough to learn at seven years old, but forced is the wrong word. (28:52) But I don't think she should feel forced by other people to make them comfortable if it makes her uncomfortable. (28:57) You know? (28:58) Yeah.
Scott Benner (28:58) So Yeah. (28:59) Charlotte is on episode six eighty two of the podcast by
Anais (29:02) the way. (29:02) 82. (29:03) Okay. (29:03) I'll check that out.
Scott Benner (29:04) Yeah. (29:04) Yeah. (29:04) So Thank you. (29:05) Okay. (29:05) Absolutely.
Scott Benner (29:06) What else you got? (29:07) I feel like I I talked a lot in the beginning, and I might have kept you off of things you wanted to say. (29:11) I for example, in your note, you said life in general, grief and lack of awareness. (29:18) What what what did you mean by grief?
Anais (29:20) Oh, grief. (29:20) I think for me, grief was like I was saying as the beginning, you know, like, maybe being pretty stoic through the the diagnosis, but then being very angry afterwards. (29:31) And I think it's sometimes regretting a little bit how easy it was before diabetes. (29:36) Like, we could just go out. (29:37) We didn't have to think about, do I have low snacks?
Anais (29:40) Do I have, you know, my my insulin? (29:43) Do I have everything? (29:44) And I think haven't stopped doing the stuff that we love doing. (29:47) So we went camping. (29:48) We've traveled, all that good stuff.
Anais (29:50) But it just takes a little bit of extra efforts, and there is moments where I'm like, you know, everything's fine, and you're like, oh, well, this really sucks. (29:57) And I think that never necessarily leaves you. (30:00) So that's the grief part. (30:01) And the second piece is, like, the long term consequences of diabetes. (30:06) I know that, you know, she's gonna live all her life with it, and sometimes it seems very daunting.
Anais (30:12) You know, it's it's great to see that there's a lot of people that have it and that great are great role models. (30:18) They've done so many things with our life. (30:20) So that that's very encouraging, but you always have those moments where you're like, oh, well, this really sucks, and it's not gonna go away. (30:27) I think that's something that I realized through the past year that you have to kind of process through.
Scott Benner (30:34) Yeah. (30:35) You know, I found myself telling somebody the other day that I just I I do wonder sometimes, like, what was Arden's life gonna be like without all this? (30:43) And what was what was ours gonna be like and without all this happening? (30:47) And, I mean, obviously, we'll never know, but I do and I do think about it sometimes. (30:52) Like, you know, like, there's days where I'm like, I don't wanna be doing this.
Scott Benner (30:56) Yeah. (30:57) You know, she and I are, you know, in the middle of something where she's like, oh, he's you know, I don't want my dad involved in this, which is something I've been ready for my whole life. (31:06) Like, I didn't not know it was coming. (31:07) You you know what I mean? (31:08) And I and then there I go.
Scott Benner (31:09) I go, that's cool. (31:10) I don't need to be involved. (31:11) And it still it's not a smooth transition still. (31:14) Yeah. (31:15) There's a thing.
Scott Benner (31:16) Like, this is shaping our relationship. (31:17) Like, I wanna be completely clear. (31:20) It's gonna be okay. (31:21) Like, we're gonna make our way through it. (31:22) This is a thing, like, you have to go through because this is the situation, but would have been cool if this wasn't the situation.
Anais (31:30) Yeah. (31:30) Exactly. (31:31) And I think that's yeah. (31:33) I I you know, I think you can always wonder, like, what it would have been like. (31:38) So I think, generally speaking, that's what I meant.
Anais (31:42) And and I think grief is very different from different people, but for me, it was more like kind of a little bit of regrets, like, how our life could be. (31:49) But at the same time, I think we have gained a lot of things through the experience. (31:52) I think I'm a better person. (31:54) We we are have a stronger marriage, and we've met so many incredible people. (32:00) So the silver linings is, you know, exist.
Anais (32:03) It's just sometimes, you know, the grift strikes. (32:07) You're like, oh, this sucks.
Scott Benner (32:09) Well well, the the rest of that thought for me is that I have to yeah. (32:13) I can't sit here and tell you I I see other people and it seems like everybody wants what they don't have or the opposite of what they get, and then I can't do the same thing. (32:22) So when I'm having that feeling, I try to go to what you just said. (32:26) Like, there's also a lot of it that's come out of it that's been positive. (32:30) And, you know, and so I you try to pay attention to that.
Scott Benner (32:33) Would you trade it? (32:34) Of course, you would trade it. (32:35) Like, you know, anything positive that comes out of type one diabetes, I'd be happy to give away right now if it meant it didn't exist. (32:42) Mhmm. (32:42) You know?
Scott Benner (32:43) But since that's not the reality of it, I'm I'm trying not to lose sight of the things that have come from it that have been good. (32:50) So
Anais (32:50) Yeah. (32:51) Totally.
Scott Benner (32:51) And continue to be.
Anais (32:53) Yep. (32:54) Go ahead.
Scott Benner (32:54) No. (32:54) It and these things continue to happen.
Anais (32:57) Yeah. (32:57) Right? (32:57) Yeah. (32:58) So Yeah. (32:59) For sure.
Scott Benner (32:59) Yeah. (32:59) And they they it's not just because I have this podcast or I get to go talk to people and, you know, tell them, like, do a better job and maybe that'll actually help somebody, stuff like that. (33:08) I mean, just, like, personally. (33:10) You know? (33:10) Like, I really talking to Arden's friend last week on the phone, like, I felt really awesome when I was done.
Scott Benner (33:16) I was like, wow. (33:17) Like, there's one person I like, I'm used to talking to a lot of people, but I don't really get a lot of opportunities when I'm not being recorded to talk to somebody and say, like, you know, tell me where your, you know, where are your problems? (33:29) Let me see if I can help you get through them and then have them at the end go, wow. (33:33) Thank you. (33:33) That was awesome.
Scott Benner (33:34) Like, I'm I'm gonna be better off now because of this. (33:36) I was like, you know, that's a good thing it's come.
Anais (33:38) Yeah. (33:38) It feels good. (33:39) Yeah. (33:39) It feels good.
Scott Benner (33:39) It really does.
Anais (33:41) And then you said lack of awareness. (33:43) I think that one is, I mean, we all are converted to this. (33:47) I think people have that have had diabetes for years and and newly diagnosed people. (33:51) But I think there is a general lack of awareness in this in the world about diabetes, what that means, what that means for parents, what that means for someone that has diabetes. (34:00) Like, you know, like you were saying at the very beginning of the episode, the the example you gave about the insurance company, like, we all have lives.
Anais (34:08) We all, like, are sleep deprived because maybe the CGM went off at, like, 3AM, and people just don't get it unless they have lived through it. (34:16) And so and you always constantly have to educate about, like, diabetes and know she didn't eat too much sugar when she was a baby. (34:24) You know? (34:25) It's just it's it's, like, silly stuff like that that keeps coming up, and you're like, come on, people. (34:30) It's not that hard, but I guess it is maybe hard to understand when you're not living in it.
Anais (34:35) And Right. (34:36) But you're you're
Scott Benner (34:37) a bright person. (34:38) You know that everybody doesn't know everything about everything. (34:40) Right? (34:40) But so what's
Anais (34:41) And even me. (34:42) Like, the injection example that you gave, I think, yeah, being converted to this makes me more aware. (34:47) But it's just very frustrating sometimes to have to educate, and and you're like, come on. (34:52) Just go on the Internet and Google it. (34:54) You know?
Anais (34:54) Like, ask GPT. (34:55) I don't know.
Scott Benner (34:56) Do you really want them to understand, or you just want them to not ask you about it?
Anais (35:02) That's a good question.
Scott Benner (35:03) Mhmm.
Anais (35:04) I think in some situation, not ask about it is probably the the more the more appropriate move for some people. (35:12) I think people just don't realize that they are a bit intrusive, but I think I want them to ask about it. (35:19) Because if they are educated, hopefully, they have a little bit more understanding what's going on for other people and other encounters. (35:24) And so it's I'm I'm I'm of both ways. (35:28) I think in some situation, I would rather not have to deal with it.
Anais (35:31) But in at the end of the day, I think the more predictive approach is to try to educate. (35:36) So here we are.
Scott Benner (35:38) I don't ask because I'm judging. (35:40) I ask because I really like, people have this question over and over again, and I keep thinking, like, what fixes it for you? (35:47) Because we're the you're not going to like, this is an appropriate thing. (35:51) It's November 19. (35:52) We're in, like, smack dab in the middle of diabetes awareness month, which I I think they changed the name of or something.
Scott Benner (35:57) But, anyway and I've watched it in this space forever. (36:00) I don't even get involved in it. (36:02) Like, I don't do extra different stuff for I'm I'm doing diabetes awareness every day of my life. (36:07) Like so, like, I I don't need to do a special because it's November. (36:10) But at the same time, I step back and watch everyone else do it.
Scott Benner (36:13) And I'm like, this is just a din of noise now. (36:15) And there's so much of it. (36:16) I care about it, and it's starting to bother me. (36:19) You really think a person from the outside is seeing one or two posts about this and going, oh, I really should learn more about type one diabetes. (36:26) I'm like, because they're not.
Scott Benner (36:27) Do you see what I'm saying?
Anais (36:28) Yeah. (36:29) I totally I agree. (36:30) I and I think I I do think that big initiatives are great, but it's probably more one on one that you educate more effectively. (36:38) Yes. (36:39) I think what's frustrating is not so much complete strangers.
Anais (36:43) It's the people that are in a closer circle that, you know, may I I say we're very lucky because most of our friends and family have been amazing, and they've, tried to read and learn about it. (36:56) But there is, from time to time, someone that you're like, okay. (36:59) It's been a year. (37:00) Like, we've you've seen it. (37:01) Like, just go read about it.
Anais (37:03) I don't want you to spend extra energy explaining to you. (37:06) Like, if you care about us, just go educate yourself. (37:09) And I think that's maybe I'm not being very empathetic to the other person here, but, I'm also tired. (37:15) God, I wake up at 3AM. (37:17) I don't want to have to explain this.
Scott Benner (37:19) You don't have the ceiling for empathy anymore.
Anais (37:22) I'm good.
Scott Benner (37:22) Yeah. (37:23) Yeah.
Anais (37:23) I've used it up all up.
Scott Benner (37:25) Either shut up or learn about it on your own. (37:27) But, like, you don't don't come asking me for help because Yeah. (37:31) I don't have an extra half a second in my brain. (37:34) Yeah.
Anais (37:34) Yeah. (37:34) I think the the best thing that a friend like, several friends actually have done is being like, hey. (37:42) I went on on this website, and I I read about this. (37:45) And can you tell me a little bit more about, like, CGM or about this? (37:49) Like, how is it for Lira?
Anais (37:51) And I just felt so seen and so supported by those friends that they just, on their own, were like, hey. (37:59) Like, this is something really big. (38:01) We want to help. (38:02) We want to learn about it. (38:03) And and I hope people have those friends in their lives because we've been super lucky to have many of them, and we love you.
Anais (38:12) They probably would never listen to this podcast. (38:14) But
Scott Benner (38:14) Well, they might. (38:15) Also, how do we all get your friends? (38:17) That's what I was wondering. (38:18) Like, how am I where are you meeting people at? (38:20) This is awesome.
Anais (38:21) Yeah. (38:21) Yeah. (38:22) We've we've been, yeah, we've been really lucky.
Scott Benner (38:24) So It really is giving to spend some time like that. (38:27) You know? (38:27) But it also, by the way, is indicative of the fact that their life allows them that kind of time.
Anais (38:32) Yep. (38:32) True. (38:33) True.
Scott Benner (38:34) And not everybody even has the the bandwidth for it, really. (38:37) I think I've been I've somehow been searching for the word bandwidth, like, for the last half an hour, it hasn't come out of my mouth, you know, in a lot of different parts of the conversation. (38:47) You know, we have much less of it and some people get more. (38:50) And, by the way, I've seen people be mad at those people, like, for having extra bandwidth. (38:54) Like, you know, like, I and I've had that thought sometimes.
Scott Benner (38:57) Like, not not in an anger way, but you know when people get really angry about something that you now think of as trivial that you might have a year and a half ago been angry about? (39:08) Like, I think that diabetes ups your perspective, like, fifty years. (39:14) Yes. (39:15) You're suddenly walking around with the perspective of, like, a 90 year old woman who's just like, you know, everything's on fire, and she's like, it'll be fine. (39:21) Don't worry.
Anais (39:22) Yeah. (39:22) Yeah. (39:22) Totally. (39:23) Oh, I see. (39:23) Yeah.
Anais (39:24) That's
Scott Benner (39:24) Yeah. (39:25) Yeah.
Anais (39:25) You know Tory.
Scott Benner (39:26) And that's one of the things I'm happy to have, like, from it. (39:29) It is one but I've also seen people be pissed that they don't that they don't have that kind of time and other people do. (39:36) Like, right, I've I've heard it talked about two ways. (39:39) Like, I would you know, if you're listening, I would hope that when you see somebody else who's complaining about something that you now know is trivial, that you would just say, like, oh, lucky them that they're not burdened by the things that that I am. (39:51) Mhmm.
Scott Benner (39:52) You know, that they can that they can spend a whole day being mad about this. (39:55) Like, good for them. (39:56) Their their lives must be free and easy, and I'm happy for
Anais (39:59) them.
Scott Benner (39:59) You know?
Anais (40:00) Yeah. (40:01) I yeah. (40:02) You know, I think it we don't know what's going on in other people's lives. (40:05) So even if they seem to have time to complain about something trivial, maybe something else is going on. (40:10) I I it's it's sometimes I'm trying to approach it that way, and I'm like, whatever works for you.
Anais (40:15) If you're happy, you have the bandwidth, not the bandwidth. (40:18) But, yeah, you know, we're all humans, so sometimes we get frustrated.
Scott Benner (40:22) Yeah. (40:22) Cut everybody a break. (40:23) I I think just, you know, be on your way and everything. (40:26) But, yeah, that's a a great advice. (40:28) Also, we have I have an episode in the pro tip series that explains type one to people on the outside.
Scott Benner (40:34) So if you ever just, like, wanna throw it out and be like, look. (40:36) If you really care that much, here's forty five minutes. (40:38) This will explain to you what my life's like. (40:41) Yeah. (40:42) You know?
Scott Benner (40:42) But, again, that's a weird thing to do too.
Anais (40:45) That's yeah. (40:46) That's
Scott Benner (40:46) Not a thing I would do. (40:47) Isn't it funny? (40:48) It's a thing I created because people ask for it, but I would I wouldn't do it. (40:52) Like, I would
Anais (40:53) I I don't know who this will be received. (40:55) You know what?
Scott Benner (40:55) That that's
Anais (40:56) an interesting experiment. (40:57) Like, maybe with some very good friend, I'd be like, hey. (41:01) But they already have done their homework, so I don't think they necessarily need it. (41:05) So I don't know.
Scott Benner (41:06) There's plenty of stuff I do on the podcast. (41:08) It's for other people that I think I'm like, I wouldn't do this, but, like alright.
Anais (41:12) Love it.
Scott Benner (41:12) Yeah. (41:13) I mean, perfectly honest with you, I you said something earlier. (41:16) It made me feel good, like, you're enjoying the bolus four episodes. (41:21) That those are a thing that I did that I was like, I don't really feel like we need to do this. (41:26) But and then I realized that for some people, it would be really helpful.
Scott Benner (41:30) And I thought, well, then I make it for them, not for it's not for me. (41:32) It's for them.
Anais (41:33) I love it. (41:34) I because it gives you strategies, and maybe it it won't work exactly the same for
Scott Benner (41:40) Sure.
Anais (41:41) My kid or myself. (41:43) But it gives you, like, a way of thinking about it, and you're like, okay. (41:46) I'm gonna try this, and then we'll see what happen. (41:49) And then we can kind of tweak it. (41:51) And the bread was super helpful.
Anais (41:53) I don't know if you've done pasta, but if you if you have a pasta episode, I'll I will save it and listen to it 50 times because we are we're really having problems with pasta. (42:02) But
Scott Benner (42:03) We're still working on the list of things. (42:05) Sadly, Jenny has a life and a job. (42:06) I can't just, like, snatch her up whenever I want to. (42:08) Although, I stole her I stole her for the for the Thanksgiving one. (42:12) Like, you'll actually I think I left it in the beginning where I'm just like, Jenny wasn't supposed to record.
Scott Benner (42:15) Hey. (42:16) I made her come do this.
Anais (42:17) We all need it. (42:19) Okay? (42:19) Thanksgiving is a big deal. (42:20) I think Halloween is the most hellish holiday that was invented for diabetic, but but we made it through for the second time.
Scott Benner (42:31) So Good. (42:32) Good. (42:32) Good. (42:32) Yeah. (42:32) It should well, yeah, you had to do it the first time, like, fresh like, fresh.
Scott Benner (42:36) Oh, yeah. (42:36) Right? (42:36) Oh,
Anais (42:37) boy. (42:37) That was rough. (42:38) Yep.
Scott Benner (42:38) Yeah. (42:39) I remember Arden, diagnosed in August, and then we went to our first JDRF walk in October. (42:45) And as you're approaching the walk and getting going, it's it's outside of Philadelphia, there's a giant table of soft pretzels. (42:53) Oh my god. (42:53) I was like, is this a joke?
Anais (42:56) Like, hey. (42:57) Good luck. (42:58) Enjoy your walk. (43:00) I was like,
Scott Benner (43:01) is what? (43:03) This is mean. (43:04) Why did someone do this? (43:05) Yeah. (43:05) Wow.
Anais (43:06) Yeah. (43:06) Well, this is for the the the, the supporters. (43:09) It's not for the diabetic.
Scott Benner (43:10) Well, I don't know. (43:11) I in my in my wildest dreams in that moment, I was like, what? (43:14) Because she saw it. (43:15) She's like pretzel, and I was like, yeah. (43:17) Awesome.
Scott Benner (43:18) Then Yeah. (43:19) Yeah. (43:19) You know, now she's on and it's cold, and she's got a jacket on. (43:22) And now I'm, like, in the weeds with a needle giving her an injection in the back of her arms so she can have her pretzel. (43:27) Oh,
Anais (43:27) my gosh. (43:28) And I
Scott Benner (43:28) totally get the pretzel wrong and her blood sugar gets high, but we don't have a CGM, so I don't know that. (43:33) And, like, you know, then you'll Oh. (43:34) You look at her a half an hour later, she looks like a zombie, and you're like, what's happening? (43:37) You test your blood sugar. (43:38) It's super high.
Scott Benner (43:39) And you're like, oh my god. (43:40) Like God. (43:41) That was literally, like, maybe
Anais (43:43) That was a pretzel.
Scott Benner (43:44) It was, like, six weeks after she was diagnosed.
Anais (43:47) Ah, this is so hard. (43:47) Yeah. (43:48) We did Halloween what? (43:49) It was well, we get out got out the hospital, and it was Halloween the next day. (43:53) Yeah.
Anais (43:53) And she wanted to go trick or treating, and so we did it. (43:56) And I don't even remember. (43:59) Honestly, I was in such a daze for the first few weeks that I remember a mom saying to her kid, and she was just, like, walking by. (44:07) And she's like, oh, don't eat too much sugar. (44:09) You're gonna get diabetes.
Anais (44:10) And I'm sure I said it at some point in my life like an idiot. (44:14) Mhmm. (44:14) But it hit differently when your kid just got out of the hospital with a t one d diagnosis. (44:19) I was like, oh, this one hurts.
Scott Benner (44:22) The cops got called because there's a French lady beating somebody up in a bush. (44:26) Yes.
Anais (44:27) No. (44:28) Yeah. (44:28) No. (44:28) See, I was just like, I I I know I just pretended I did I ignored it. (44:33) But, yeah, that was that was bad.
Scott Benner (44:35) Did you look inward during that? (44:36) Did you think, oh, I probably said that in the past?
Anais (44:38) I did. (44:39) Yeah. (44:39) I was like, oh gosh. (44:40) That that's terrible. (44:41) I prob you know, I probably said that, but I probably say a million stupid things that, in retrospect, probably were hurtful.
Anais (44:48) And and sometimes when you reflect and you're like, oh, what an idiot. (44:52) I should have never said that or done that. (44:54) Yeah. (44:55) But it's too late, and so you can just try to learn from it. (44:59) I don't
Scott Benner (44:59) wanna freeze everybody, but imagine all the other things you don't understand that you're saying all day long.
Anais (45:04) Oh, gosh. (45:04) Yeah. (45:05) I'm sure. (45:05) Yeah. (45:05) Sure.
Anais (45:06) But that one that one was like yeah.
Scott Benner (45:08) I have this odd thought exercise that I I do sometimes where I wonder do you ever just you do something and you realize, like, oh, I was misunderstood in this situation or that's not what I meant. (45:20) And it's just in your it's in your house. (45:22) It's with your husband or your kids. (45:23) You're like, oh, they're misunderstanding me. (45:25) Do you ever wonder, like, if they're being misunderstood too?
Anais (45:28) Oh, yeah.
Scott Benner (45:29) Yeah. (45:29) And then you look back and you go, are any of us communicating how we actually feel to each other or hearing it? (45:35) Like like, I don't know. (45:35) Are we all just five steps off of center of really understanding what's happening around us?
Anais (45:41) Right? (45:41) Maybe.
Scott Benner (45:42) Oh, I think about that all the time.
Anais (45:43) Yeah. (45:44) I I you know, I think some people are very good at communicating their thoughts and their needs. (45:49) And we're trying to teach that to our kids because, you know, at four, we have a lot of big emotion that we try to to rationalize somehow. (45:58) But, yeah, it's tough. (46:01) I'm I'm sure we some sometimes miss on what the other person is trying to say for sure.
Scott Benner (46:06) All I know is is that there's a way I know I am, and then there's a way I know I'm perceived. (46:11) And then Yeah. (46:13) I think, well, then when I'm perceiving my son or my daughter or my wife, they they don't feel exactly the way I'm perceiving them either. (46:22) And it's it's just I don't know. (46:24) Like, when you really stop and think about it, it'll make your brain explode.
Scott Benner (46:27) Yeah. (46:27) I don't
Anais (46:27) I don't know if I want to do this. (46:29) It's too early in the morning. (46:30) I just don't want to I just don't want to do And
Scott Benner (46:33) it and it just it really it flips me out. (46:35) I'm like, oh gosh. (46:36) Like, I don't know if what I think is happening is really happening sometimes.
Anais (46:40) Yeah. (46:40) You're in the matrix.
Scott Benner (46:41) And what if everyone's having that experience at the same time, but we're together? (46:46) I don't know. (46:46) Like, I don't even know how to do the calculus on it, but I know it makes me it fries my brain a little bit. (46:51) I would probably need to smoke weed and then talk about it because I don't know that, like because you kinda get to an end point in the thought where you're like, you know? (46:59) Anyway
Anais (47:00) Maybe that will help. (47:01) Maybe that will help. (47:01) I don't know.
Scott Benner (47:02) Yeah. (47:02) Good luck. (47:03) Well, good luck to everybody. (47:04) Like, go go have your own deep thought. (47:06) I have to I thank you very much for doing this.
Scott Benner (47:09) I know I kept you longer than normal, but I really thought that sharing my brother's story in the beginning there, even though it took up some time, I really did think it was it fit here. (47:20) So I appreciate you sitting through that while I was talking about
Anais (47:24) Well, thanks for sharing, and, also, I really hope he's doing better.
Scott Benner (47:27) Thank you. (47:28) We should find out together. (47:29) I'm gonna text him. (47:29) I have two texts to send this morning. (47:31) One, and I I have to send one to Rob, the guy that edits the podcast, because he had a little bit of a meltdown last night in text, but I was asleep.
Anais (47:40) He's gonna have so much fun trying to figure out my accent.
Scott Benner (47:44) But but he oh, god. (47:47) What happened here? (47:48) Do you ever do you ever, like you know, somebody starts texting and then they text again and again and again? (47:52) You're like, uh-oh. (47:52) They're in trouble?
Anais (47:53) Yeah. (47:54) Or you're like, I'm not gonna I'm not or sometime I'm like, ignore until I feel ready to deal with, like, 10 texts.
Scott Benner (47:59) Well, Rob, just Rob, just so you know, I I was asleep last night when you texted this stuff. (48:04) So I'm sorry, but I'll get back to you right now and my other texts to my brother. (48:09) Actually, I'm gonna do it right now. (48:10) I'm gonna say I'm gonna say here's what I'm gonna say. (48:14) I'm gonna say Anise and I
Anais (48:17) Want to know if you're doing better.
Scott Benner (48:18) Wondering if you're feeling better. (48:20) Hopefully, he doesn't see that and think it says anal. (48:23) Alright. (48:23) Here we go. (48:26) Hold on a second.
Scott Benner (48:27) You were great. (48:28) Thank you so much.
Anais (48:29) Thank you so much.
Scott Benner (48:36) I'd like to remind you again about the MiniMed seven eighty g automated insulin delivery system, which of course anticipates, adjusts, and corrects every five minutes 20 four seven. (48:46) It works around the clock so you can focus on what matters. (48:51) The juice box community knows the importance of using technology to simplify managing diabetes. (48:56) To learn more about how you can spend less time and effort managing your diabetes, visit my link, medtronicdiabetes.com/juicebox. (49:07) I'd like to thank the blood glucose meter that my daughter carries, the Kontoor Next Gen blood glucose meter.
Scott Benner (49:14) Learn more and get started today at kontoornext.com/juicebox. (49:20) And don't forget, you may be paying more through your insurance right now for the meter you have than you would pay for the contour next gen in cash. (49:30) There are links in the show notes of the audio app you're listening in right now and links @juiceboxpodcast.com to Contour and all of the sponsors. (49:41) Thank you so much for listening. (49:43) I'll be back very soon with another episode of the juice box podcast.
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