Scott Benner 8/22/25 Scott Benner 8/22/25

#1608 Free For All

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Steven, Stacy, and Nicole join after spotting Scott’s FB post about a hiccup with a scheduled episode—stepping in to share their voices and stories with the community.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends and welcome back to another episode of The Juicebox podcast.

I just had somebody not cancel, but they're on vacation and their internet connection sucks, so I rescheduled her, and I'm putting up a post on my private Facebook group right now. It says, Who wants to record a podcast episode right now? And I'm just going to hit post right now. Ready? It's 11:40am I am here to tell you about juice cruise 2026 we will be departing from Miami on June 21 2026 for a seven night trip, going to the Caribbean. That's right, we're going to leave Miami and then stop at Coco k in the Bahamas. After that, it's on to st, Kitts, St Thomas and a beautiful cruise through the Virgin Islands. The first juice Cruise was awesome. The second one's going to be bigger, better and bolder. This is your opportunity to relax while making lifelong friends who have type one diabetes. Expand your community and your knowledge on juice cruise 2026 learn more right now at Juicebox podcast.com/juice. Cruise. At that link, you'll also find photographs from the first cruise. Nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan. This episode is sponsored by the tandem Moby system, which is powered by tandems, newest algorithm control iq plus technology. Tandem Moby has a predictive algorithm that helps prevent highs and lows, and is now available for ages two and up. Learn more and get started today at tandem diabetes.com/juicebox this episode of The Juicebox podcast is sponsored by the Dexcom g7 the same CGM that my daughter wears. Check it out now at dexcom.com/juicebox All right, I just had somebody not cancel, but they're on vacation and their internet connection sucks, so I rescheduled her. Caitlin, that was you, in case you're listening. And I'm putting up a post on my private Facebook group right now. It says, Who wants to record a podcast episode right now? You need a mic with headphones, a quiet space and solid internet connection. Will take about an hour, no video free for all. And then I put the link to this recording right here, and I'm just gonna hit post right now. Ready? It's 11:40am post, all right, let's see if people pop in or not. I think this is interesting. Oh, you're gonna probably want me to keep talking. I just want to sit here quietly. Could I just sit here quietly? And then rob edit out the quiet and then tell us how long it's been since somebody popped on maybe, excuse me, I know Rob loves it when I use a metal cup with ice in it. Sorry, Rob, oh, here comes somebody. Steven. Steven, hey, hey, man, how are you going? Scott, good, good. How are you

Stephen 3:09
all right? So, yeah, I'm looking forward to seeing you on the boat in the physical sense.

Scott Benner 3:15
Me too. I can't wait to meet everybody. It's going to be fantastic. Yeah, I didn't know Ryan was going, that's cool. There's a lot, a lot of people coming. I couldn't imagine, honestly, like, when the person approached me to do this, I said, Listen, we got to have an out. And she, she says, what? I was like, it was like, when three people want to do this, I said, I'm going to be embarrassed. Like, you know what? I mean? Like, we're gonna have to pretend it's not happening. It'll be interesting. Yeah? And sure enough, we got 100 people coming. It's awesome. You know? Yeah, you know, yeah, and she wants to do it again next year. She's already like, we should set it up again for next year. I think it's going to be great. I think it'll grow. And I was like, so we'll see. Let's, let's look into it. So, yeah, I

Stephen 3:53
mean, it is overwhelming though, setting up a boat and getting on a boat and all that stuff. Oh, still.

Scott Benner 3:59
Yeah, no kidding. I mean, it also taught me that I got to try to do something on land too. So I'm working. I'm working right now.

Stephen 4:09
Good, that would be nice, you know, no, that would be nice to meet at a location or something like that. That'd be cool. Yeah,

Scott Benner 4:14
I'm trying to figure it out. I'm going to start slowly with touch by type one is going to help me set up an event in Philadelphia, and then we'll kind of like, go through the process, see how it works. And then how is your friends for life, relationship with them? So I've never been there before. I'm going, you haven't been to one never. I've never been there. I'm going, I'm going, this year. Oh, you're gonna go to are you in Orlando? Yes, hey, I'll see you there. Are you gonna be there? Oh, no kidding. Oh, that's awesome. Yeah, no, I'll be there, yeah. So, yeah, I'm doing the cruise, getting off the cruise I record for a week, and then after the fourth of July, I fly down to

Stephen 4:51
back again. It's like, bang, bang. No, that's great, because I went to Disneyland last year, right? It was the first I, you know, for years and years and years. Just thought that I'd like to go, and I went, and I was just blown away by how nice the people were, how comfortable I got to meet with ginger there. That was interesting. Yeah, that's awesome. And it was just a really warm, fun open event. And then that, you know, kind of like a camp environment, really. I've

Scott Benner 5:19
heard that even though it's children with diabetes, that a lot of type ones, adults come

Stephen 5:23
Yeah, the one, they said, the one in Orlando, is going to be more than 50% Oh, no kidding, yeah, that's going to be it's really risen quite a bit. And they said his daughter, the one that started it, is a nurse now, and a CDE. And she said, Yeah, home that the me's are coming back. So they're now adults with kids. Oh, that's awesome. So they're on their, you know, they're basically in their second, third generation of people that have been involved in

Scott Benner 5:50
this. Oh, it's crazy. Yeah, I got approached by tandem, and they asked if I'd come down and do some stuff with them at the event. So I'm going to, I'm going to have my own booth, but I'll also be working with them a little bit. I'm gonna be doing like, on the like, kind of like, on the fly interviews with little kids with type one. Oh, cool, yeah. So we're gonna sit down and, like, talk to little kids and record it, I think, for social media and stuff like that, and then the rest of the time I'll be at my booth, you know, trying to tell people about the podcast.

Stephen 6:21
Yeah. I mean, the new algorithm is so much greater for the kids. It just, I'm blown away at the flexibility in the new algorithm. Oh, for control. IQ, yeah, yeah, it is really nice. In fact, Joanne Milo, I'm involved in a good group with her. In fact, that's kind of one of the things I wanted to tell you is the old people. We need some podcasts on old people

Scott Benner 6:44
with type one for ways to, like, manage, or

Stephen 6:47
No, just the whole package, the entire package. Medical challenges are number one, which is managing and being able to manage at that age, and then the things you have to overcome in that process, there's a website that Joanne's leading the push to put together, which is a website for older diabetes, and it's called T, T 1d to 100 is going to be the name of the site, and it is going to have all kinds of resources and information and stuff that will be accessible by anyone, and then lead them in the right direction. It's kind of like, in some ways, I think of it's going to be like Jay Jones 504 site, where you go up and there's resources, and you can look at resources. It won't be a Facebook page, but it the race resources will be there. So we've been putting together resources, and it's just an audience that is just kind of a forgotten audience, and people don't realize the challenges, the extra challenges, yeah,

Scott Benner 7:44
well, I can imagine how easily it would be to get to get forgotten, because nobody's selling to you anymore, right? So you're not, you're not a focus for that. It's nothing fun about it. No, you can't put it on social media. It doesn't, it doesn't have that kind of judge. How do you think it gets out to people, though? How do you reach the people? Let them know that the information is there.

Stephen 8:01
That's part of what you know. Joanna, actually, she's she may be able to partner with taking care of your diabetes group, and both doctors have talked to her and said, we've got to do a show on it. Okay? So that may be one opening. And then, of course, you know, be nice to have one on your side too. No, I would. There's a lot of silent on the Facebook page. There's a lot of silent people up there. Because if there's something up there about Medicare, all of a sudden you're getting all kinds of questions.

Scott Benner 8:26
What I would want to do is build out a list of of important points and then put a series together around it.

Stephen 8:33
Oh, that would be fantastic, because the aspects would be something like, how do you get coverage, you know, and how do you deal with the pharmacist, and what do you do when you go to a hospital? And those are the kind of the groupings. And actually, the groupings that she'll have on the website will be pretty much outline what you might want to do in terms of a series.

Scott Benner 8:50
Oh, I'll talk to her about it. Steven, I have other people jumping in. Now, this didn't occur to me that other people will do it. I'm going to see what I got here. Hold on, a second. So we've got, oh, I like these people. Hold on. We're gonna let Stacy in. I don't know how many people voices I can do before this will become confusing, but Stacy, yes, sir. Hey, Steven jumped in already. But, uh, so you're here with Steven and I. But how are you? I'm good. How are you, I'm good. Do you want to, like, record an actual, like episode, or you just want to say hi? Oh, I don't care. You don't care.

Stacey 9:23
I would like to record an episode eventually. Yeah. Well, so today's good, or another day is good. What do you want

Scott Benner 9:29
to talk about? We'll kick Steven right out of here. Don't you worry. No, what do you want to talk about?

Stacey 9:35
No, Steven, anything and everything. I've, well, I've had diabetes for almost 30 years. So I've been in and out of everything, anything from diabolimia to addiction and alcohol. My sister was diabetic and she passed away when she was 30. I mean, just, there's all sorts of things we could talk

Scott Benner 9:56
about. Wow, that's something. Do you really feel like? Ready to do this now? Or. Would you like to just get on the schedule and get set up? I don't care. I'm up for anything really. All right, yes, hold on a second, because I think I'm gonna get you on the schedule. Let me, let me, let Nicole, and also let me, let me go to Facebook and like kill this post. Hold on a second. All right, hey, to make sure nobody else jumps in, Nicole, how are you I'm good. How are you good? Steven and Stacy are here, and I'm going back to Facebook to delete this post so more people don't show up. Hold on one second, I have to say. So Stacy jumped in with some really good ideas for an episode. I think I'm just going to set her up in a on a schedule so she can come on and really get a get a good all right. Hold on deleting this here. Good. Thank God, still a good after dark. Yeah. Oh no. Well, I mean, as soon as you started talking, I was like, well, Stacy has an after dark. Has an after dark for sure. Oh, yeah, hold on a second. We'll get you, uh, we'll get you all set up. When do you want to do it?

Stacey 10:49
I'm available whenever. I'm my own boss. I'm a cat sitter.

Nicole 10:53
So,

Scott Benner 10:54
yeah, well, I'll tell you what I could do. Would you be up for the 25th of July, I would love to Okay, so I'm gonna send you a link. I'll do it right now. Can I just drop it in here and you can go over to the 25th of July and grab up a time that works for you? Beautiful, awesome. How long have you been in the group? Probably, like, two years now, maybe Awesome. Yeah, have we ever spoken before? No, sir, no. Okay, hold on a second. No, here's the link. Perfect. Got it? You're gonna see other availability, but definitely just do July 25 Okay, cool, awesome. Okay, all right. Hey, Nicole, what's going on? Hey, how are you? I'm good. Thanks. I see you all the time online. I try. Yeah, it's nice to speak with Speaker knowledge that you think it's in there. It is. It's

Nicole 11:49
just timing, you know, like timing for insulin, but it's timing when you need what you need, you go seek that knowledge. Okay, it's there.

Scott Benner 12:00
So whenever you have a question, you go to that Facebook group and you get an answer

Unknown Speaker 12:03
for the most

Nicole 12:04
part. Like, this morning, I keep hearing people say, go back to the pro tips. So I've scrolled them. And this morning I listened to the first one, if you're new, or restarting, and it triggered some things with me,

Scott Benner 12:18
really. So you've heard them before. And how long have you had diabetes? Two years, two years, Steven, how long have you had diabetes?

Stephen 12:28
55 and a few weeks. And yes, the time I listened to one, I actually learned something too.

Scott Benner 12:35
Not crazy, why? But like, Nicole Steven, like, why is that perspective? So your perspective keeps changing, and then you hear something again. It strikes you differently.

Stephen 12:45
It's listening to other perspectives that open the little thought, or the door that says, hey, maybe you know, and something like that, yeah, either that or it has me screaming something at the podcast, saying, No, this is how you

Scott Benner 12:58
do it. Oh, yeah. Well, I can't be right about everything. I can vouch for that. So Nicole just two years as a type one.

Nicole 13:07
Yes, I'm the the new early diagnosed person. I had breast cancer, and I believe Keytruda triggered my pancreas to attack itself. That's an immunotherapy for cancers, a bunch of different cancers. Anyway, yeah, so I think that's how I got here. Okay,

Scott Benner 13:29
so you don't have it, it's not in your family at all. You can manage diabetes confidently with the powerfully simple Dexcom g7 dexcom.com/juicebox, the Dexcom g7 is the CGM that my daughter is wearing. The g7 is a simple CGM system that delivers real time glucose numbers to your smartphone or smart watch. The g7 is made for all types of diabetes, type one and type two, but also people experiencing gestational diabetes, the Dexcom g7 can help you spend more time in range, which is proven to lower a 1c The more time you spend in range, the better and healthier you feel. And with the Dexcom clarity app, you can track your glucose trends, and the app will also provide you with a projected a 1c in as little as two weeks, if you're looking for clarity around your diabetes, you're looking for Dexcom, dexcom.com/juicebox when you use my link, you're supporting the podcast dexcom.com/juicebox head over there. Now. This episode is sponsored by tandem Diabetes Care, and today I'm going to tell you about tandems, newest pump and algorithm, the tandem mobi system with control iq plus technology features auto Bolus, which can cover missed meal boluses and help prevent hyperglycemia. It has a dedicated sleep activity setting and is controlled from your personal iPhone. Tandem will help you to check your benefits today through my. Link, tandem diabetes.com/juicebox, this is going to help you to get started with tandem, smallest pump yet that's powered by its best algorithm ever control IQ. Plus technology helps to keep blood sugars in range by predicting glucose levels 30 minutes ahead, and it adjusts insulin accordingly. You can wear the tandem Moby in a number of ways, wear it on body with a patch like adhesive sleeve that is sold separately. Clip it discreetly to your clothing, or slip it into your pocket head. Now to my link, tandem diabetes.com/juicebox, to check out your benefits and get started today,

Nicole 15:38
I don't think so. I might have had a grandmother, a great grandmother, who may have had some issues, but again, this was like back in the early 70s, and either she wasn't diagnosed or she didn't know, and she was elderly at the time.

Scott Benner 15:54
Yeah, who knows? How about you? Stacy, how long have you had it? I've had it for almost 30 years. Wow. And how old are you now? I am 39 Oh, you were little. I'm a little one. Yeah, even 55 years. How old were you?

Stephen 16:08
I was 17, and I got out of Vietnam.

Scott Benner 16:12
Wow. Do you think? Do you ever think about trauma? Like you hear people talking about that a lot lately, like I had a traumatic event, then I was diagnosed afterwards.

Stephen 16:20
Mine can only be aligned with I had several months of low blood sugars post meals, so things were not working right ahead of time. And I've heard a lot of people describe that, especially in the mid teens and 20s, yeah, and that that was an additional symptom they don't talk about, and then got a fever that was like 106 for half a day, and then that, from then on, everything went wrong,

Scott Benner 16:42
just like that. Nicole, how long did it take you? What was the breast cancer like from diagnosis to completion? How long is that? That time

Nicole 16:51
I was diagnosed in October of 22 I started chemo in November of 22 and I ended my last one in April, April or May of 23

Scott Benner 17:04
okay? And they remove your breast. Uh, yes, okay.

Nicole 17:08
So then that happened in August, I believe of 23

Scott Benner 17:13
I see, did you opt for an implant? Or did you just not?

Nicole 17:19
I went for the implant. Either they have other surgeries, but they are very extensive, removing belly fat, which I have none, or fat from other areas, and, you know, reconstructing breasts, but that's like a 12 hour surgery, and a recovery is harsh. Wow,

Scott Benner 17:36
gosh. Are you cancer free? Or how do they think? How do they talk about that? Yes, you are.

Nicole 17:43
I was found what they call no evidence of disease in May. So I did in chemo in April, but in May, I went for a PET scan, and then they found no disease, and then they confirmed that in August with the samples when they removed the breast tissue,

Scott Benner 18:00
congratulations. Thank you. That's wonderful. How much does that shift your perspective on life?

Nicole 18:06
I think I was strong already, and so I took it on, head on, full on, with the confidence that I was going to be successful in the end. Okay, so I think it depends, because like your group, there are other Facebook groups for survivors and women going through breast cancer, and there are all levels of, you know, despair and distraught, and the chemo, how harsh it is, and some people take it well, and some people just don't,

Scott Benner 18:39
yeah, so then, after you went through All that, how long was it before you got type one? When I

Nicole 18:44
went for my labs in May, my

Scott Benner 18:47
blood sugar was 424, right? And April, you finished. So just right away,

Nicole 18:51
right to it, right to it, they diagnosed me as a type two.

Scott Benner 18:55
A slap in the face or like, did you feel like, oh my god, there's another thing. I

Nicole 18:59
felt like, Yes, oh my god, there's another thing, because right before that, my thyroid went out of whack.

Scott Benner 19:05
Oh, geez. And that's how long ago now? No, it's about two years, am I right? Yeah, okay,

Nicole 19:11
the thyroid went first. So the thyroid kind of petered out. I would say in February of 23 maybe March of 23

Scott Benner 19:20
Nicole, you want to get on the podcast too, and, like, do a like, a proper episode, sure. Okay, we'll get that set up too. And Steven, I see your note here, and you are going to be happy to know that as soon as I get back from friends for life. Tandem, I are putting together a Pro Tip series for control IQ, like the one we did for Omnipod five.

Stephen 19:41
That'd be great. I just we need to add some stuff in there that they don't say, though, and that is the way that the algorithm works. They don't want to tell you. And the people the push for doing things in the algorithm and setting it up and not prioritizing basal testing is a big, big, big, big mistake by tandem,

Scott Benner 19:59
okay? Okay, so what I'm going to do is, when the time comes, so I've already, oh, this is probably boring, but, like, I've already, like, agreed to do this with them. We have, like, a, not, we've agreed to do it. So it's happening. That's great. Yeah, I'll go out to the audience and get everybody's questions. And so when that happens, make sure you you throw your thoughts in there. Then I'll collect them, while I'll go back to them. We'll put together a, you know, a flow for a conversation, and then, yeah, then we're gonna do, I

Stephen 20:25
kind of ended up being kind of an expert on several podcast, podcast group meetings and zoom meetings. When I'm there, they say, not there, they save questions, and then when they come on, they give me questions. Okay, good, or I get them. So

Scott Benner 20:41
I know it pretty well. All right, awesome. I'll be able to ask them directly then and make them, you know, make them, or have them talk about it. All right, so, Stacy, Stacy, you got your link? Yeah, I'm signed up. Awesome. And sir, are we, I can? Are we gonna cry when you and I do this? Or, like, what is your story? Like? Super sad. Your internet's a little shaky, so we're gonna have to figure that out before we get back and recording. Okay, yeah, are you, um, at home now? I'm at home now, yeah. So I don't know if you're on Wi Fi or you're wired. I'm not sure, but you jump, you your voice leaves while you're talking. So we'll figure that out. Okay, you know what I mean? Like, do you have a wired computer at home? One that's directly

Stacey 21:25
No, I'm so non technical. I have an iPhone 12 that I'm using right now with wired Apple earbuds, they

Scott Benner 21:34
sound fine. It's nothing wrong with the way it sounds, just that you kind of come and go. So we'll probably

Stacey 21:39
okay. I could go to where, like, I have Wi Fi when we when we do record awesome,

Scott Benner 21:44
that'd be perfect. That's great. Let's do that for sure, because I feel like I'm going to hear a number of different twists and turns in your story. I want to be able to dig into it really well, yeah, yeah, Nicole. I think we're gonna have to do the same thing like, so what do you have? Are you able to record? Nicole? August 8 or fourth. It's a Monday and a Friday.

Nicole 22:05
Fridays are better. Okay, so right now, I don't have anything on my Work calendar, and what time were you thinking?

Scott Benner 22:14
It doesn't you can choose the time. There's a link in the chat here, and if you click that and go to August 8, you can take whatever times that you want. Okay, all right, yep, awesome. Okay, all right. What else should we talk about? I like, this is

Unknown Speaker 22:29
nice,

Nicole 22:31
ninja level stuff. I feel like, I feel like my timing is off, and pre labor Bolus, I'm working on with some foods. I know you're gonna come up with the episodes of the food things and how to Bolus for them.

Scott Benner 22:46
Yeah, I can't wait to see how that goes. So Jenny and I are gonna start that on Friday where we're just gonna take one, like, one specific food and just talk about it, like, straight through, and just do it over and over again with a bunch of different foods. They'll probably end up being shorter, like, you know, probably 10 minute conversations around that idea. That's one of the two things that people ask for all the time. Like, can you tell me how to Bolus for this specifically? And obviously, I don't think we can tell people exactly how to Bolus for something, but we can tell them the things they should be thinking about and break down that item. And the other thing they always want is, like, reading graphs. But I don't know how to do

Nicole 23:18
that without video. That was my question. I'm like, Scott, yeah, you're

Scott Benner 23:22
not the only one. Trust me, people send a lot of it's like, can you do episodes about reading graphs? And I'm like, we don't need to see the graph while we're talking about it, though. And that's the one thing I kind of can't figure out.

Nicole 23:34
So can you take anybody's graph? Yeah,

Scott Benner 23:37
then how do the how does the listening audience see the graph. That's that's the problem. Like, that's the thing I have to figure out. And right now, the podcast apps, they don't, they don't allow me to, like, send you, like, a singular image in that and then to say something, like, it's on a link and you can go look at it right now. Like, I don't know if people would really do that, or if I'm not sure, I guess, but it's on my list. So unless Jenny and I get old and give up or something like that, we'll probably get to it eventually. I just don't really know how to do it yet.

Stephen 24:11
There's not that many different kinds of graphs. We come up with special names for them, like the roller coaster and the Dippy, you know?

Scott Benner 24:20
Yeah, oh, I see what you're saying. So you go from an Upsy into an Upsy, yeah? You could talk

Stephen 24:26
about if the Dippy sharp and the Dippy comes back up quick, you know it, yeah, things like that.

Stacey 24:33
You got cat ears. I bake my graphs into a lot of cats

Stephen 24:38
are using an algorithm or a bump with an algorithm.

Stacey 24:41
I'm in, uh, Omnipod five, but I do a lot of bumping.

Scott Benner 24:45
Yeah, you're having to, like, step in and give insulin. Oh, yeah, I

Stacey 24:49
do, but it's only, like, point one unit, point two units at

Scott Benner 24:52
most, and that helps. Yeah, I have to figure they're going to make that thing more aggressive the next time around,

Stephen 24:59
I. Hope don't understand why they don't log the learning is that it seems like if they log the learning and you kind of report, you'd be able to do something. But

Scott Benner 25:06
I don't know why they don't, yeah, I don't understand the back end of any of those first three days are so critical. I mean, I would just have listen. They're longtime sponsors, and I'm a big fan of Omnipod, but at some point you're going to step back and say, you know, what do I hear when people are talking about other systems? People say, like, that's more aggressive. Feels more aggressive to me than this one, or this one does a better job at that than this. Like, you have to think, if you're trying to sell something you you know, you hear it 10 times. You probably think, well, maybe we should make an adjustment. So I don't know. I don't I don't understand the business of it at all. So I don't know what they're doing or what anybody's doing.

Stacey 25:41
They just sent the email saying that g7 will go with the iPhone app. Okay? I'm like, Well, that's about couple years later. They say in a few weeks. So I'm like, maybe in a few months they'll have it.

Scott Benner 25:55
Every company does that, the Android iPhone thing, no one's ever like, to my satisfaction, explain to me why it's one of the other when they launch like, you know, somebody's like, Oh, we're gonna launch first for Android, or we're gonna launch first for when Omnipod said years ago, we're gonna launch first with Android, I thought that doesn't make sense. Don't more people have

Stacey 26:15
iPhones? Yeah, Dexcom did iPhone all the time. And then

Scott Benner 26:19
I was like, and why can't you do both? Is it like? Is it you don't have enough hands to do the coding? Is it like? Is it actual like, resources to get it done? Like? And then you think, well, there must be a reason they chose Android first. Then another company steps up and they go, Hey, we're going to come out, but when we're first out, we're going to be iPhone only. And I was like, That blew my mind, because I was because all the things I wondered about didn't make sense anymore, you know, I was like, I figured, oh, there must be a reason to go with Android first, and then another company. I forget which one it was. I don't know if it was tandem. Maybe, like they came out, like iPhone first, then we'll get to Android. And I was like, What the hell? None of this makes any sense to me, having worked

Stephen 26:53
for a medical equipment company. It's resources and dedicating resources, because the time it takes to write, it takes so long, and the time it takes to test it takes so long, yeah? And then you have to have a clinical group available to do the assessments. Yeah, it does. It does. You're right. Though, the planning just seems to be, you know, let's just get this done and out the door, and then we'll worry about the rest later. It doesn't that doesn't make

Scott Benner 27:15
sense. Yeah. I mean, I want everybody to be safe and everything to be done well. But it is frustrating when you know, five people you don't know from the internet figured it out in a week and a half. They don't have to go through the FDA then and everything, obviously. But yeah, it is still frustrating from your pre like, you know, a few guys are like, Hey, we're gonna take loop and turn it into trio, and then they just did it. And now it's awesome, and it works on Android and iPhone, so it feels like it could be done. But there must be a ton of, like, just, you know, back room or governmental or whatever. Like, the hurdles must be incredible, because you can't think they don't want it, you know, like, because I talked to all the PR people and all the companies, they're not thrilled that they have to lean one way or the other. So I don't know

Stacey 27:56
it dictated what phone I was using, because when Omnipod came out with the Android. I went from iPhone to Android every day. I was like, Man, I hate this Android, but it's, you know, it's not gonna be too long. And then two years later, they did iPhone. Went straight back to iPhone. And when Dexcom came out, that's why I got an iPhone. I went from Android to iPhone. So the diabetes tech dictates, like, what phone I use? Oh, yeah, basically, yeah,

Scott Benner 28:24
we opened the box for Omnipod five, and Arden picked up the controller. She's like, what's this for? And I was like, well, that controls the Omnipod. She goes, my phone does that now. And I was like, right? She was, I don't want to carry two things. And that was sort of it, yeah, that kind of screwed out of the box, you know? Now, obviously that's not the same now, but it was on day one. She was like, I don't want to carry more stuff, right? I'm looking for ways to carry fewer things with me. 30 Stacy, you said 30 years ago when

Stacey 28:52
you were nine. I was nine and fourth grade. Yeah.

Scott Benner 28:56
Okay, so you were regular in mph, yep. Okay, Steven, you were beef and pork, right?

Stephen 29:03
Yeah, beef and pork, regular and NPH, until I told them I didn't want to do it anymore

Scott Benner 29:10
when they argued. And Nicole, you just got like, humog or something like a proper Yes, I see you guys talking in the chat. And Steven asked you, Nicole, if your doctors offered you any help when you were diagnosed with type one, and what did you tell them that they said this has never happened to anybody before.

Nicole 29:28
My oncologist, yes,

Stephen 29:30
there's clinical data on that, though, that amazes me. That just blows my mind.

Scott Benner 29:35
Yeah, that's what I was gonna say, like, that's a labeled event, isn't it? Yeah,

Stephen 29:39
is to monitor the other endocrine systems during that process you're supposed to be doing, yeah, it's

Scott Benner 29:45
Keytruda or Keytruda Nicole. Yes, Keytruda, yep. I think that diabetes is labeled for that it is

Nicole 29:53
now that, now that I have it and I listen to the commercials, but they were checking my. My thyroid, and it was normal one week, and the net next week, it was like eight, yeah, my body just was like, done. Yeah. No kidding. I think the same thing happened with the pancreas. It was just like, done. There was no warning,

Scott Benner 30:18
yeah. Keytruda, an immune checkpoint inhibitor, can cause thyroid dysfunction, including both hyper and hyper thyroidism. Yeah, but I guess it also probably saved your life, right? It does, yeah, jeez, yeah. It's a lot. It's a lot to give. Yeah, heavy. What are you gonna Yeah, I don't know. Like, I've never, I don't want to be in that position. I've never been in that position. But, like, did they say that to you, or did they just say, Hey, we're going to use this drug now? And they didn't say, like, also, what these other things might happen.

Nicole 30:46
I don't think I was told this, all of the specifics, right? The key true to this immunotherapy is a new type of regimen that they give all triple negative breast cancer patient. So it's a certain regimen you get, you know, this drug, this drug, and the key true to periodically, and because they it's not receptor positive, so it's not positive for estrogen or progesterone or anything else. So they have to like it, and they call it aggressive. So they try to throw the big guns at it, yeah? Because there's no aftercare for it, either, like, once you're done with chemo and if you get radiation and a mastectomy or what have you, there's nothing else to give to

Scott Benner 31:34
you. Yeah, that's just that. Jeez, are you married? I am not. No, I was. I was going to say, like, Was this something that you need a lot of support from other people for? Or, and did you have

Nicole 31:46
I had a wonderful support group. My son, at the time, was 15, maybe 14, and then my mom, she doesn't live forever, but she came to stay with us for some time. And then at a group of friends, sorority sisters and family who would go to chemo with me each week. I had 12 weeks of weekly and then it progressed to four times at three week intervals. Yeah, before I was done, there was one time I was like, you know, they monitor all your labs. So there was one or two times that I couldn't take the chemo that week because my blood cells were too out of whack or too low. So they have other drugs for that. But I felt supported. It was exhausting, but I felt supported. I felt prepared.

Scott Benner 32:35
I'm glad I almost made you cry actually, when you said your sorority sisters came with you. So let's, let's hold that off till it's just you and I. I don't cry in front of three people. I don't mind doing it one on one, but

Nicole 32:48
and it was hard for me because I'm not the type of person to ask for help. Yeah, right, so maybe that was my part of my life's journey, to be able to ask others for help. Awesome. That's great. Okay? And accept it all right.

Scott Benner 33:03
Well, let's not waste this all here. Nicole, we're gonna we have you book. Stacy, we got to figure out what we're going to call yours after dark. What do you think is going to be called?

Stacey 33:10
Oh, God. You Ever Wanted to talk to a pot head while they are smoking? You can do that with me. Gonna

Scott Benner 33:15
do it while you're Am I gonna have to get weed and do it with you so that we can do it together. That would be really fun. Yeah, I don't know. I gotta save that for season 15. Maybe, actually, you said, oh god. I thought, is that what it called after dark? Oh, god,

Stacey 33:30
Oh, baby.

Scott Benner 33:32
All right, Steven, you were on episode 828,

Stephen 33:36
yeah, were you on another one or no, I don't have another one. No, just that one, okay, yeah, no, I don't know. It's just, I've just talked to you so many times. I've given you so many names and that people that have come on. And then, you know, I look back, and then I go, I feel like I've been on it more than once because of all the people that I sent that have got on,

Scott Benner 33:56
yeah. Plus, we talk sometimes, like, you know, outside of this. So I thought this was really nice. I appreciate you guys doing this. I was nice meeting you, Nicole, and you stay C in person like this. And I'm excited to record with you guys, and I appreciate you jumping on and doing this with me. I was set up with Caitlin. She's a returning guest. She was on like, five years ago, and she pops on, and it took forever for her Internet to connect. And I was like, what's happening? And she finally gets on. I'm like, Are you on? Like, okay, are you in a crater on the moon? Like, where are you exactly? And there was, like, 54321, I'm on vacation. And then I was like, oh, so I tried again, and I asked her a question, and there's five seconds, and then she answers me, and I'm like, Okay, listen, Caitlin. I'm like, this isn't gonna work. I was like, I think you have bad internet. She goes, Yeah, this house sucks, and there's so many people on the Wi Fi. And I was like, Okay. I'm like, why don't we do it next week? And she's like, okay. Then I got done and I sat here, and I was like, I was all ready to talk to somebody.

Nicole 34:59
And. Look, look how every PE everybody showed up. It

Scott Benner 35:03
was really lovely, yeah, like, because there is that thing, you know, like, you I popped on and I, I have this, I don't know what you would call it. I don't think it's imposter syndrome, but, like, I'm waiting for the day that I go to the internet and say something, and no one responds, and I feel like I'm going to be like, Oh, okay, it's over. Now. It's like an unfair ability to, just like, reach out into the world and get a lot of people to respond like, I take it for granted sometimes, because I'll have a question, I'll be like, oh, I'll just ask. You. Know, I thought that after I put the post up today, I was like, Oh, I hope somebody like, reaches out, but it was lovely to meet all of you. And Steven, of course, talk again. I'm going to put this up as an episode. I hope people enjoy it. I think it shows, I mean, obviously everybody's got different stories, and they're all unique and very interesting, but at the same time, like, everybody's in that Facebook group together with all of these different stories. Like, look at you. Like, 55 years, 30 years, two years, autoimmune cancer, like, all these different ways to diabetes, you get into that group and like, none of that. Like, I feel like that all just sort of melts

Speaker 1 36:02
away. No, we're all just there to help each other. Yeah.

Stephen 36:06
Really is lovely, a name for Nicole's podcast. So when it comes up is, is a double badass? Because you've got two worlds. You become a badass. And

Scott Benner 36:16
it's a lot, yeah, Nicole, you have a really good vibe about you online. I don't know if you're aware of that or not. You come across very measured and thoughtful, but feeling. I don't know many people's names, but I know yours like I know yours because you're you're just, you're very consistent, I guess is the word I'm looking for and and thoughtful and inquisitive at the same time. So I'm here to learn. No, I appreciate it. Like, I've said this 1000 times in the podcast, but I made that Facebook group because people bugged me to do it. I did not want to do that because of, like, you know, what it takes to manage it, and what a headache it can possibly be. I didn't know all the good stuff that was going to come from it. And I'll tell you too. And I said this earlier to Steven, I don't know if we were recording or not, somebody approached me about doing about doing the cruise. I like, behind the scenes, said to them, I'm like, well, we need to wait to get out of it, because if nobody wants to do it, I don't want to be embarrassed. Like, I'm not afraid to say that. Like, I don't want to, I don't want to announce a thing and have two people want to do it like it would, I'd be embarrassed, you know. And the same thing with the Facebook group. I was like, I don't want to start a Facebook group and then have, like, you know, 1000 people in there, and it just never grow. And I know that. I don't know how that sounds exactly, this is me being very transparent, like, I would look at that as a failure, and I don't want that, but I didn't think this was gonna happen, for the love of God. Now, I was like, how did this happen? Like, and it last month, out of nowhere, I don't know what changed in the algorithm. We were adding like 200 people a day for like two weeks. Yeah,

Unknown Speaker 37:56
you just posted that like couple days. Stacy,

Scott Benner 37:59
it's funny. Your internet is so terrible, but I still understood what you were what you were saying. Yeah, so there's an automated Facebook post that goes up every 150 new members. It's like, it welcomes people and it gives them links to stuff, right? Holy crap. Like, it just kept happening. And I was like, I'm like, What's going and I thought, is this gonna keep going? Like, it won't. Like, Facebook will throttle it eventually, or do something. But so I happen to unfairly know, because of how big the group is, somebody in the group put me in touch with a family member who works for meta, and I got to ask some questions about like, you know, there's nothing more frustrating than having 65,000 people say, I'm here. I want to hear about the thing that this person is going to say, and then you post something, and Facebook doesn't show it to them. And so like you're trying to understand, like I was trying to understand, is there a better way to do it, or how do I reach people? And I was lucky enough to get on the phone with this meta employee. She said a couple of things that were stunning to me. One of them was, if you would have called me a year ago, I could have just basically turned a dial and made you more popular. And I was like, what? And she goes, Yeah, we used to have the ability to help friends and family on Facebook. And I was like, seriously crazy. She could have just judged me up 10% and been like, here, I'll make sure more people see your content. And she's like, then we don't have we can't do that anymore. And I was like, Okay. And then she talked about, you know, like, ways to phrase things so that, like, you know, the algorithm is more like, likely to show it to people. But it was just all, like, depressing, you know, like, I'm like, I don't want to do all this. Like, I just want to put up a post about how to Pre-Bolus and the people want to see it, should see it. It just doesn't work that way. Well,

Stephen 39:41
one of the things they added, they added this year, which is interesting, is the auto join. So if you're participating in a an arena, whatever it might be, you get invites and or you get auto joined to groups. And I had not seen that before this year, and that's happening

Scott Benner 39:58
quite a bit, but that. Might be great. Also, the, if I'm in inferring from her, yeah, we'll find out, inferring from her conversation that I had with her, the government switched this last time when the when the President switched this last time, what Facebook is doing switched also. And what she told me was, is, we won't be shadow banning medical information the way we used to, yeah, and she goes, that's probably hurting you too. And she's like, so that'll go away. And I was like, okay, like, I didn't, like, I didn't dig into it. Like, you know, politically with her. I was just like, okay, she just said, like, we were quelling medical information, like, so we're gonna stop doing that. You might see an uptick. And I was like, oh, like, even that. Like, piss. I was like, You mean, I'm out there killing myself putting this content together and, like, I'm putting it up, and you're like, going, no and slapping, like, slapping my digital hand. I'm like, Oh my God. Like, you have no idea how much time and effort goes into that stuff. It's exhausting. So, yeah, anyway, all right, you guys are all fantastic. I appreciate this very much. I'm definitely putting this episode up, and then I'll, I'll talk to you, Stacy, and you Nicole and Steven, I'll see you on the ship in a couple weeks, couple weeks, all right, that's exciting. Yeah, I can't wait. I have to. I'll tell you, like, while the three of us are here, Suzanne comes to me and she says, like, this is what I do for a living. I put these cruises together, and I have type one diabetes, and I'm in your group, and I listen to the podcast, and she goes, I just think, like, people would want to get together with other people with type one, like, let's try this. So I was like, All right, you know, like, can we put the whole thing? It's, there's a lot in the background of it, and it was a little overwhelming to, like, just throw yourself into but I was like, All right, like, I'll just, like, I'll do it. Like, let's do it. And, you know, it picked up steam, and we got enough people there was, you know, it paid for itself. Like, no, I'm not. I literally don't think I'm making five cents, but I don't care about that. Like, it's, it's nice, like everybody's getting together, but I got to talk to people more who were doing it. I think it's one of those things where, because I don't have type one, I just don't understand it enough. And I think this is going to help me understand it more. But people are just so thrilled to meet other people with diabetes.

Stacey 42:05
Yep, a diabetes in the wild, nobody's the best,

Scott Benner 42:08
I swear to you, like, I understand it intellectually. Like, don't get me wrong, but like, I don't understand it, I guess, in my in my heart, the way they do and but to hear them talk about it over and over again, like, I can't wait to get on that ship, because even at some point, Suzanne said, Look, we'll build private time in for you so you can get away from people. And I was like, I'm like, I don't want to do that. I was like, let's let me just talk to everybody. Like, she goes, you're going to get exhausted. I was like, well, then I'll get exhausted. Like, I'd like to have a meaningful conversation with everybody on the ship. Like, I really want to understand why is this so meaningful? That's the information I'd like to come away with when it's over. So hopefully it's

Nicole 42:44
nice to personally know someone else who is going through what you're going through, because maybe you don't get it on the Juicebox podcast, but you may get it from a friend who's going through it, or went through it, or maybe not, and then you entice them to come on to the Facebook group.

Scott Benner 42:59
It's just worth knowing somebody else, like, for reasons like, that'll be your own, you know, in the end. But I mean, I see how important is to people. Like, I said earlier, like I did the, I mean, I didn't do the Facebook group, because I was like, Oh, I'll make a place where people will, you know, all the things that happen there. I was just like, people are asking for it. And I was like, okay, but now I see what it does. I tell people, like, privately all the time. Like, they'll talk to me about, like, oh, the podcast, how it helps people. It's like, I think that Facebook group might be more valuable than the podcast. Like, if you had to, like, pit them against each other, because it reaches people who don't listen to podcasts, and that's a lot of people. Like, you know, I love podcasts, but I don't think most people do. It never really grew outside of where it grew to. So I think that means we've reached all the people in the world who want to put headphones in and listen to somebody talk.

Nicole 43:46
I don't think that's the case, no. And I think people come back, yeah. I don't think they go away forever. I think they come back upon need,

Scott Benner 43:55
yeah, reason, yeah. I hope so. You know, when I first started doing it, and I was like, you know, you just make one a week. That's what people tell you a podcast is when you start. And then eventually someone said to me, like, could you make two? And I was like, I guess, so, you know, and then you make two. And I'm like, All right, then covid came, and people were like, everybody with a podcast slowed down their podcasts at first to covid, and I was right away. I was like, that doesn't make sense to me, but the overwhelming thing I heard from people was like, nobody's gonna be in their car. They're not gonna listen to my podcast. And I thought, nobody's gonna have anything to do. They're gonna want to listen to more of your podcast. Yeah. So I started making more, and then people just kept coming back. And was like, why are they not all five days a week? And I was like, Uh, I don't know. Like, you know? And I said, moreover, like, I was scared it would like put people off, but it doesn't. And then one day it hit me, I'm like, a radio show is not on two days a week. Your radio host gets on in the morning every day, Monday through Friday, and talks for four hours. And it's there if you need it, and maybe you'll take 10 minutes of it, or an hour of it, or Tuesday and Monday. Like. Once I could get over I don't know what it is, I don't think it's ego, but like, you get over yourself, like that feeling of like, when you make something and put it out in the world, you want people to like, to want it the way you meant it, like, you know what I mean? You want them to take every second of it. And once, I was like, that's not always gonna happen, and who cares? Like, it'll always be there for them if they need it, and maybe they'll just find one episode a week that's valuable to them, like, that's great. You know, if I only made one a week, it might take me two months to make something that's interesting to you. But if I throw, you know, if I put this thing up five days a week, you're definitely going to find something that you intersect with, yeah, you

Stephen 45:35
know, you know a person that has some insight on that, that really has a good perspective, is Adam Brown, because he's a therapist now, and so that community part and understanding the reason why it works and what's happening. He we had a discussion in a camp a couple years ago, a year ago, and it was really, you know, insightful in the way he was talking about it. And he has a practice in Erica. Knows him, but he has a practice in and he's also the one that wrote the

Scott Benner 46:02
43 list, yeah, that yeah, that variables list, right? Yeah, yeah, yeah. Adam's been on. He's awesome. I really like

Stephen 46:10
he's just, he's just a genuine, genuine person.

Scott Benner 46:13
But I mean, even as you're talking about out there, that's how I feel about it now, like somewhere, wherever you are, whether it's with headphones in your ears or online and you want to interact with a person, there's always, and Nicole, you said this at the beginning, like there's always someone there or something there, or content there when you need it. Like it's not up to me to tell you you need it on Mondays at 10am it's going to be there when you need it to be there. Even as I described it to the advertisers, I'm like, Look, you know, there's ads on every one of these days. I'll tell you, like, I'll do my best to randomize them, but you might end up on a day that nobody listens to and not much I can do about that you really are supporting a public good. I mean, that's how I don't want to say, sell it, but that is how I sell it to advertisers. I'm like, Look, I know that the thing I put together helps people, and you know, I need your help doing it. I can't. I mean, look at us. We're 1230 in the afternoon. You know, I got up this morning and I've been working for a couple of hours. I jumped on to record. I'm going to get done. I'm going to work some more. I'm going to jump on a meeting two hours from now to try to, like, learn more about that circle group, so that, hopefully I can put that together in a way that's helpful for other people who aren't on Facebook and don't want to be on Facebook, and then that's it. It's my whole day. If you really want to do this, it has to be someone's job. I mean, Steven probably knows well, Stacy's for 30 years too. But like, there's been a ton of different orgs that have come along and said they're going to help people with type one diabetes. They all come and go, and sometimes it doesn't even matter how much money is behind them. You know, some of them were pretty big, and it just, they still just peter out at some point. And I think they don't have enough touch points. And that's why I'm so thoughtful about putting the podcast out every day, like I think it always needs to be there, because if not, you know, if you all go away for Thanksgiving and then don't come back, then the thing dies. And, you know what I mean, like, I need it to stay alive, even when people don't need it, so that it's there for when, you know, when they come back around again.

Stacey 48:13
Well, I also like that there's no boundaries for you. You're not afraid to talk about anything. Yeah, and there, yeah.

Scott Benner 48:20
Interestingly enough, that confidence comes from the fact that I have so many advertisers. If I just had one advertiser, I would naturally be scared to make them angry. I mean, I said it earlier when we were talking to you, like, I think the Omnipod five algorithm should probably be more aggressive. If Omnipod was the only advertiser, I don't know if I would say that out loud or not. Like, maybe I'd be like, you know, I know that they've got my back. I know the content works like whatever it is I am where I do. I know it works. So that's good. So now we just agree that that's helping people. And then you have to have the backing to do it, the work every day, to do it, and you have to not get bored by it. And I think that's a little bit of me being older and having grown up really broke. I'm not doing this thinking, like, what could I turn this into? Like, how can I ascend to something else? I'm like, I like this. This helps people. I'm good at it. Now, you know what I mean? I want to keep doing this. And I do see a lot of people like, they're so quick. They're trying to ladder climb so quickly, they'll help you along the way. But that's not their focus. My focus is just helping people come out, get a bunch of advertisers. They back my time and the content. I know it sounds probably ridiculous, but that small sip series that doesn't exist if the podcast isn't what it is, because right, Steven, because

Stephen 49:41
it's the influencer thing on the web, or the influencer thing is not what this is. It's, it's a voice for the community, yeah, and that's, that's a rare thing. It is a voice for the community in many, in so many ways. I

Scott Benner 49:53
appreciate you saying that. But that small sip series, those are my ideas about how I took care of Arden filtered through my. Conversations with Jenny about them, then you get her opinions too. We get them blended together. Then she and I keep working together for years. You can hear as we go on, like, we like, I call it all kinds of stuff, right? Like, it's the bowl beginning series, and it says it's all just ask Scott and Jenny. It's ask Scott and Jenny. Like you ask a question, we answer it the best we can, but we've gotten better at like, our conversations are better. They're more succinct. We know what each other's thinking like it gets better and better. And then one day, someone gets online and says to me, the thing that I have to tell you breaks my heart more than thinking like I don't have time to listen to a podcast. And I'm always like, I'm like, I'm killing myself making this thing for you. Just sit down and listen to it. Okay, fair enough. You don't have time. How am I supposed to take all of this conversation over all these years and squish it down so that a Tiktok generation, and then that's where the Facebook community comes in. I go back to the community, and I say, Look, all I said was a sentence you heard in the podcast that really was transformational for you. What were they? And everybody answered back. And then we just collated them all together, and we said, Okay, here's the top 20. You know, one

Stephen 51:04
of the things that's unique, Scott is that when we in the wild, and the rest can speak to this too, but when you're in the wild and you meet somebody, the kind of conversation you have is very similar to the way in which the stuff comes out on the podcast. And it's not always just diabetes. It's a perspective about diabetes. It's the experience. It's well, what do you do when, I mean, it's broad, and that's what I feel nice about when I'm listening, is it sounds like a conversation. I would sit down and ask somebody if I had the time, if I had the time, if we were both diabetics sitting in a quiet place, yeah. And

Scott Benner 51:40
if you could actually even find that person, find that person? And yeah, no, I appreciate that, because I think it's pretty obvious, if you've been listening long enough, I don't have the actual ability to have a more high minded conversation than the one I'm having. I can't talk down to you. I don't have any ability to talk down to you, and I can't talk at you because I'm not an expert. My very first thought about what the podcast would be was I said, Well, I'll talk to other people with type one diabetes, and then I'll be an avatar for the people listening, because I don't really know what I'm talking about, so I'll ask questions. Hopefully they're the questions you would have if you were talking to the person. I'll just act as the proxy between you and that person you don't have contact with that person. That's the thing I have. And like, I don't know everything about type one. I mean, obviously, but I know way more about it today than I did two years ago, and way more about it than I did five years ago. And if it's working for me, then I have to think it's working for the people listening too, for the very reason that a lot of type ones would tell you they don't like me. I think it works because I don't have diabetes. I think it works because I can't, you know what I mean?

Stephen 52:48
Yeah, you're that neutral, that neutral trigger that says, gee, I've wanted to ask this question, but I haven't asked it. And

Scott Benner 52:56
yeah, I don't have any preconceived notions about it. Yeah, because I've seen really well meaning people with type one get, like, really lit up about something. And I from a, from a you step back and go, I don't really understand why they're so upset. But obviously some happened in their life. This is very triggering to them, you know. And so if you when you put that person in charge of the podcast, now suddenly it's not as down the middle as it could be. It's colored with their perspective still. And I can't do that because I don't, I don't have it to do it with, so I don't know. Anyway, it's a lot, a lot of thoughtful talk about a diabetes podcast. I don't think that much effort should be put into it. All right, I'm gonna let you guys go, Stacy and Nicole. I'm super excited to record with you again, Steven. I'll see you soon. Thanks guys. Yeah, you guys are awesome. Thank you. Take care. Everyone. Bye, everybody, bye, bye,

bye. The podcast you just enjoyed was sponsored by tandem diabetes care. Learn more about tandems, newest automated insulin delivery system, tandem Moby, with control iq plus technology at tandem diabetes.com/juicebox. There are links in the show notes and links at Juicebox podcast.com. Dexcom sponsored this episode of The Juicebox podcast. Learn more about the Dexcom g7 at my link, dexcom.com/juicebox, hey, thanks for listening all the way to the end. I really appreciate your loyalty and listenership. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox podcast. Hey, kids, listen up. You've made it to the end of the podcast. You must have enjoyed it. You know what else you might enjoy? The private Facebook group for the Juicebox podcast. I know you're thinking, uh, Facebook, Scott, please. But no. Beautiful group, wonderful people, a fantastic community Juicebox podcast, type one diabetes on Facebook. Of course, if you. Of type two? Are you touched by diabetes in any way? You're absolutely welcome. It's a private group, so you'll have to answer a couple of questions before you come in, but make sure you're not a bot or an evildoer. Then you're on your way. You'll be part of the family. When I created the defining diabetes series, I pictured a dictionary in my mind to help you understand key terms that shape type one diabetes management. Along with Jenny Smith, who, of course, is an experienced diabetes educator, we break down concepts like basal, time and range, insulin on board and much more. This series must have 70 short episodes in it. We have to take the jargon out of the jargon so that you can focus on what really matters, living confidently and staying healthy. You can't do these things if you don't know what they mean. Go get your diabetes defined. Juicebox podcast.com, go up in the menu and click on series. The episode you just heard was professionally edited by wrong way recording. Wrong wayrecording.com.

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Scott Benner 8/21/25 Scott Benner 8/21/25

#1607 Three Legged Dick

Megan, 36, has lived with T1D since age 4 and now faces lupus too.

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Scott Benner 0:00
Here we are back together again, friends for another episode of The Juicebox podcast.

Megan 0:15
My name is Megan. I am 36 and live in the Midwest, and I've been a type one since I was four years old. If

Scott Benner 0:25
this is your first time listening to the Juicebox podcast and you'd like to hear more, download Apple podcast or Spotify, really, any audio app at all, look for the Juicebox podcast and follow or subscribe. We put out new content every day that you'll enjoy. Want to learn more about your diabetes management. Go to Juicebox podcast.com. Up in the menu and look for bold Beginnings The Diabetes Pro Tip series and much more. This podcast is full of collections and series of information that will help you to live better with insulin. Please don't forget that nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. The episode you're about to listen to was sponsored by touched by type one. Go check them out right now on Facebook, Instagram, and of course, at touched by type one.org check out that Programs tab when you get to the website to see all the great things that they're doing for people living with type one diabetes, touched by type one.org today's episode of The Juicebox podcast is sponsored by the ever since 365 the one year where CGM that's one insertion a year, that's it. And here's a little bonus for you. How about there's no limit on how many friends and family you can share your data with with the ever since now app no limits. Ever since Summertime is right around the corner and Omnipod five is the only tube free automated insulin delivery system in the United States, because it's tube free, it's also waterproof, and it goes wherever you go. Learn more at my link, omnipod.com/juicebox, that's right. Omnipod is sponsoring this episode of the podcast, and at my link, you can get a free starter kit. Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox,

Megan 2:28
my name is Megan. I am 36 and live in the Midwest, and I've been a type one since I was four years old.

Scott Benner 2:37
That's 32 years ago. I know. Wow. No kidding. So do you feel old

Megan 2:45
when I get out of bed sometimes? Yeah,

Scott Benner 2:48
is that your back and your joints? Where do you feel it

Megan 2:51
everywhere, like my shoulder, my back, my legs, my feet. But I also work out five times a week, so I feel like I'm just perpetually sore all the time.

Scott Benner 3:04
Do you have other autoimmune stuff? Like I

Megan 3:07
was diagnosed with lupus in September of 22 the only reason they caught it was with blood work, though, and I don't seem to have any outward physical symptoms. It's not joint pain that I feel. It's more like

Scott Benner 3:22
muscle soreness. Okay, what do they do for that? I'm

Megan 3:26
on hydroxychloroquine. That's the only thing I'm on right now. Does it help? Well, I don't feel like it's ever been bad, so it's hard to say.

Scott Benner 3:34
Is the medication prophylactic? Are they trying to get ahead of something?

Megan 3:38
I think so, because we've determined that I've never really had any kind of lupus flare. They caught it kind of by accident. I had low iron and then pancyte anemia, so all my blood counts were low. They they did further testing to try to figure out the cause of that. They did, like an ANA titer, and then they did further, like more specific lupus testing, and all those markers came back positive.

Scott Benner 4:10
Anybody in your family have it? Nope, I'm the lucky one. I'm the lucky one. That's from a movie. I don't know what that is. I can't think of it. Do you have anything else, like thyroid, celiac, anything there? Nope, no. Okay, nope, any type one in your family? Yes, who my dad? His dad? My aunt, which is my dad's sister, her son, who is type two,

Megan 4:38
my grandmother, which is my dad's mother has type two, and I think that's it.

Scott Benner 4:46
Wow, you guys got carpet bombed with diabetes? Yeah, seriously. But other than that, the lupus is the only other autoimmune thing you're aware of. Nobody's got Ra. One of those grandmoms doesn't have RA or anything like that.

Megan 4:58
No, no. He. Only other thing that I've had is ITP. It's like idiopathic, something where my platelets were super, super low and I couldn't clot. That happened when I was, like, eight years old, and it kind of just resolved on its own,

Scott Benner 5:15
wonky. Yeah. How did they figure that out? Were you just bleeding?

Megan 5:19
Yeah, I lost, I lost a tooth, and I was super excited because I was eight, and I wanted some money from the tooth fairy. Yeah, put the tooth on my pillow. Woke up the next morning, my pillow was covered in blood, and then obviously my mom was freaked out. Yeah, so we went to children's, and they ran some tests in the ED and admitted me. I think I was there for maybe two or three days, no kidding,

Scott Benner 5:44
and then they figured that out that's something. So you're saying that the lupus impact for you, if it's anything, it's muscular, but you don't think you're having an impact,

Megan 5:54
at least not that I'm aware of. I don't know if it's like muscular, or if that's just, you know, my workouts, because it's a feeling that I've felt before, and it was before

Scott Benner 6:06
I had lupus, too. So, okay, how long you've been taking the medication,

Megan 6:10
since like October of 22

Scott Benner 6:14
Oh, okay, like coming up on three years? Yeah, all right, well, and you take, is it a pill a day, or it's a pill and a half. Awesome. Yeah, I don't know what to say. That's it's interesting. I've never had anybody say I have something, but I have absolutely no symptoms, but they're still

Megan 6:30
medicating me for it. Right? Isn't that

Scott Benner 6:32
weird? Do you ever think that you're doing the wrong thing, or do you ever think like, wow, this must be really working. Like, what's your gut feeling about

Megan 6:40
it. Well, my complement levels, which I guess, is how they measure the active disease you have, like the active lupus disease going on in your body. They're always like, hovering at the low end of normal. And there have been a couple of times where they've been actually low. So I think that there is a need for the medication from that standpoint, yeah, but I don't know, like, they kind of just hover in this same little range, and it doesn't seem like, you know, it's raised significantly, but I also don't feel bad, so I mean, feels worth

Scott Benner 7:20
doing and keeping an eye on. Yeah, all right, fair enough. But are you married? Do you have kids? Single?

Megan 7:27
No kids. I have two fur babies, and then I have a boyfriend. Did

Scott Benner 7:35
he come with the dogs? Or did the dogs come with him? Or I came with the dogs? You came with

Megan 7:40
the dogs? Yeah, he has

Scott Benner 7:41
a three legged cat. No, seriously,

Megan 7:45
yeah, named trip,

Scott Benner 7:48
trip with two peas, by any chance? Yeah, yeah, Tao would have done it. So is the cat dexterous, or does it fall a lot?

Megan 7:55
No, he's pretty good with his, um, he's missing a front paw, and he's, he's got this super buff, like one front Paul, and he, he seems to get around pretty fine. I really haven't seen him fall or anything, although I think he's getting kind of chubby, so I think that might be a problem. If pull him over. I know, yeah, keeps being fed the way he is.

Scott Benner 8:20
Okay. So you're diagnosed at a very young age, and I'm gonna ask some questions. I know you have some topics, but let me ask you a couple questions. First, Yeah, cuz you're, you're an interesting age, right? You're in your mid 30s. You're not, like, you're not in your 40s, and, like, giving up already, and you're not in your 20s and still, like, fighting the system, right? Like, you're Yeah, you're in your 30s now, like, yeah, what was it like growing up with diabetes, and was your experience the way you felt it as it was happening in hindsight? How do you feel about

Megan 8:51
it? See, so when I was diagnosed, it was actually three weeks before my fourth birthday, and we were scheduled to go go on like a spring break vacation to I think it was Gatlinburg, somewhere in Tennessee. I get diagnosed. We go to our local children's hospital. And the weird thing about my diagnosis story is I wasn't in DKA. I wasn't sick. My parents caught it pretty early, just because with my dad's family history, like he was well aware of the possibility, so he knew what to look for. So I wasn't sick. I didn't need a bunch of fluids. I didn't need my blood sugar brought down from 1000 so they kind of didn't know what to do with me, and I was just like sitting in the hospital for a couple of days before they discharged us. But back then, it was the regimen was R and NPH, which I could for the life of me, I wouldn't be able to remember how to dose that now, sure, and then, obviously, no CGM. So thinking about that. Just in hindsight, I don't know how my parents, like, didn't lose their minds not knowing what my blood sugar was. And, like, obviously, I'm an active four year old, just running around and being low all the time. And it was a pretty, like, strict meal plan. So it was breakfast, morning snack, lunch, afternoon snack, dinner, bedtime snack. And if you missed any of those, or the timing was off, you bottomed out. Yeah, so from looking back at that now, and if I had a child that, you know, didn't have a CGM, and I don't know, I don't know how I would be able to do it. The technology now is it's great when it works. I know that sometimes it's pain in the ass, but it's so much better than it's flying blind, basically,

Scott Benner 10:53
yeah, yeah. I just had this conversation with Dexcom President Jake, and it's going to be on the podcast in a couple of days, and by the time people hear it'll be a couple months ago. I feel compelled, you know, I ask people for questions for, you know, hey, somebody's coming on from this company. Ask your questions. Mostly people don't jump on and say, like, Hey, can you tell them thank you? Like, you know what I mean? Like, it's like, here are my complaints. They feel like I might have a bit of a pathway to somebody hearing this, and not that anybody's complaints are in any way invalid, but I do sometimes feel like it can overlook what you just said, like this is not perfect, but yeah, you should have been here 40 years ago. Yeah, yeah. I think you'd experience a sensor failure, or, you know, a misreading, or your pump site going bad early, and you think to yourself, this is way better than it could be. Oh, yeah, yeah. So it's tough, because, you know, when people jump in now, they're diagnosed in the last couple of years, you know, they hear there's this great technology, blah, blah, blah, and when it doesn't work, for some reason, they don't make that rest of that connection. Like, I always say, like, go around your house to all of your electronics and all of your gadgets, and they all work the way you think they're supposed to. Like, you know, like, we're still getting there, you know what? I mean. Oh, yeah, technology wise. Anyway, okay, so you're growing up without anything, really. Or, I mean, when do your parents say, Hey, this is on you. Or when do you say to them, I don't need your help anymore. Or do you stay like as a kind of cohesive team for a long period of time? Today's episode is brought to you by Omnipod. It might sound crazy to say, but Summertime is right around the corner. That means more swimming, sports activities, vacations, and you know what's a great feeling being able to stay connected to automated insulin delivery while doing it all. Omnipod five is the only tube free automated insulin delivery system in the US, and because it's tube free and waterproof, it goes everywhere you do in the pool, in the ocean or on the soccer field, unlike traditional insulin pumps, you never have to disconnect from Omnipod five for daily activities, which means you never have to take a break from automated insulin delivery ready to go tube free. Request your free Omnipod five Starter Kit today at omnipod.com/juicebox Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox type that link into your browser, or go to Juicebox podcast.com and click on the image of Omnipod right at the bottom, there's also a link right in the show notes of your podcast player. Why would you settle for changing your CGM every few weeks when you can have 365 days of reliable glucose data. Today's episode is sponsored by the Eversense 365 it is the only CGM with a tiny sensor that lasts a full year sitting comfortably under your skin with no more frequent sensor changes and essentially no compression lows. For one year, you'll get your CGM data in real time on your phone, smartwatch, Android or iOS, even an Apple Watch, predictive high and low alerts let you know where your glucose is headed before it gets there. So there's no surprises, just confidence, and you can instantly share that data with your healthcare provider or your family. You're going to get one year of reliable data without all those sensor changes. That's the ever since 365 gentle on your skin, strong for your life, one sensor a year. That gives you one less thing to worry about. Head now to ever since cgm.com/juicebox, to get started.

Megan 14:39
I'm trying to think when they started, it was mostly my dad, because he was obviously typing himself more familiar with it, because he lived with it already, and he's also in the medical field. So there was, he had all this information and experience. I think as young as, like, six years old. Old, he started giving me the syringe that was already dosed and holding my hand while we both injected. And then from there, I think I was around eight years old when I started doing my own injections. And then I think I was also part of the process of dosing. So they'd be like, okay, Megan, it's dinner time. How much are we taking? And I'd say, you know, whatever. And then, okay, how much mph? And I know that. I think it was cloudy first, then clear. So I was taught that whole process too. So I think probably by the time I was 10 years old, I was at least involved in treatment decisions. And, you know, meal time dosing,

Scott Benner 15:50
okay, that generally meant, like, just making sure you injected on time, making sure you ate at the right times, like there was you weren't doing a ton of, I don't know, adjusting, giving yourself more insulin later? Were you? No, no, you weren't covering numbers or stuff like that.

Megan 16:05
No, that was probably closer to, like, teenage years.

Scott Benner 16:09
Okay. And your father has type one. Is he still alive? Yes. And how is his health?

Megan 16:14
He's good, yeah. You know a 60 something year old white man, so he has high blood pressure, no complications from diabetes so far. When he was diagnosed when he was senior year of college, so I think 23

Scott Benner 16:29
okay, oh yeah, he's been at it for a while too. Yeah. All right, yeah. And do you and he still manage similarly? Or, have you? I mean, have you grown? Have the two of you grown with what you've done over the years, or has he stayed pretty stable and you've changed?

Megan 16:42
So I have the tandem pump, and then the g7 he still does manual injections with Atlantis and Humalog, and then he has the g6 he hasn't upgraded g7 yet. He's a little stubborn. I keep telling him, like because he'll complain about, you know, he'll go and do yard work, and his blood sugar will start tanking. I'm like, Well, you can't do anything about it, because if you decrease your Lantus, you'll be high when you're not doing an activity. And then if you go do activity, you're gonna, you know, tank. So I keep trying to sell him like, you know, the pump, and I think I might have finally convinced him, but, yeah, he's still doing manual injections. I think his a 1c, are mid sixes. He's managed

Scott Benner 17:33
pretty well. Yes, certainly has. And where you're sitting, my last

Megan 17:39
two, it was 5.7 and then I just had one recently in a 6.1 but I also just, like, moved one of my dogs, like, died right after, right before we moved, and then I'm in the middle of, like, a job change, so, like, some stress things have been happening, so I'm okay with, like, The little bit of a bump up that it's had, but I prefer it to be, like, under six.

Scott Benner 18:06
Yeah, did you kill the dog or did it die naturally?

Megan 18:10
He died. He was this little chihuahua mix, and his name was pickle, and he died of liver failure. No kidding, how old? Yeah, he was only seven. That sucks. He had a congenitally small liver, and it just couldn't keep up with

Scott Benner 18:29
his body. You didn't find that out till he was, like, in trouble, I imagine, yeah,

Megan 18:34
we didn't find out till it was like, end stage liver failure, which is, it's super similar to, like, if a person has liver failure, wow, so interesting.

Scott Benner 18:43
Yeah, I have a question you may not have an answer to, because it's your life, and you grew up that way, right? But how do you think your life, who you are today, how you interact with the world now, has been impacted by having diabetes? I don't know that I've ever asked anybody this before, but you feel like wisdom to me and in the right maybe you're probably like, don't give me too much credit here, Scott, but like, I feel like you're a good person to ask this question up. Maybe I'll end up being wrong, but

Megan 19:12
I feel like it's made me more resilient. I don't know. I feel like I owe it to my dad, because he never wanted me to feel like, not that I wasn't different, but that I couldn't do anything that I wanted to do, or that like it shouldn't keep me from doing the things I want to do, and so far it, it really hasn't. So I think growing up with that mindset and then just in general, like having to manage a disease like this, that's like all day, every day, you don't get a break. I think it's just made my you know, given me, like a tougher skin.

Scott Benner 19:51
If I take you back 10 years, would you answer it the same way? Or do you have a different feeling in your mid

Megan 19:56
20s? I might have a different answer, because. Because during my, like, early 20s, I wasn't the greatest at taking care of it. So I went from, you know, being managed by the endo at Children's to, you know, okay, you're on your own. You're 18, and, like, I kind of dropped the ball for a few years after that by not getting, like, an endo immediately after, you know, I left Children's Hospital, so I had a few years where maybe it was just burnout, where I didn't pay attention to it as much as I probably should have.

Scott Benner 20:33
Yeah, where did that put your a one, CS back then nine? Yeah, like, and you think it went on for a couple years, yeah, through through do you go to college? To go through college?

Megan 20:45
Yes, through college, and then in between college and trying to find, like, my first adult job, I, you know, served and bar attended for a few years, and just working in that, like industry, it's common for, you know, people to get off work at like 9pm and then kind of have like a happy hour. So that was probably the height of, like, my drinking phase too. I guess you would call

Scott Benner 21:13
it. I thought you're gonna say do cocaine and have sex with co workers, because some people have come on here and told crazy stories about working in

Megan 21:21
restaurants. Yeah, no, well, I might be boring. You're

Scott Benner 21:25
like, I just got loaded.

Megan 21:28
Yeah, I just drank like, a boring

Scott Benner 21:31
person, like a boring person, yeah, no, seriously, some of the stories people have told about restaurants, I'm like, Really,

Megan 21:37
yeah, no, there are crazy stories that, like, I've heard like, the next day, but you know, I wasn't you. No, I was typically somebody that, like, I was one of the first ones to go home most of the time, because I'm, like, all right, I'm I'm out, but,

Scott Benner 21:51
but you've had a friend come up to you and tell you, Oh, I know why. They call him the short order cook now,

Megan 21:55
yeah, yeah, yeah, stuff like that. Like people getting arrested at three o'clock in the morning and, like, missing their shift because they're in jail. Yeah? Like crazy.

Scott Benner 22:05
Tip your waiter. Yeah, they need it for bail. Yeah, yeah, that's funny. My gosh, okay, so, I mean, you can call it burnout. Like you said, I didn't get an endo real quickly after leaving Children's Hospital, but like, you still knew what you were doing, right? So, like, Is there, like, there's some sort of, like, I mean, listen, this happens to people where they have diabetes or not, right? They reach a certain age and they're like, I'm an adult now, right? Like, and maybe for some people, it's like, I'm not gonna clean my room anymore, or I'm, you know, I'm gonna let my hair grow, or I'm gonna have sex with that guy that my mom told me not to. But like, for you, it's like, I'm probably not gonna take insulin quite as often as I had to. It's yeah, yeah. And you're okay now today, you feel good. Yeah,

Megan 22:47
I do. I feel good despite, you know, having the, you know, somewhat recent lupus diagnosis, yeah,

Scott Benner 22:54
but you know how to use your insulin. You have you're up on technology, you're active. You obviously work out a lot. So let's talk about that a little bit like, yeah, when did you start like, working out? Like, I mean, five times a week is pretty aggressive, right?

Megan 23:07
Yeah. But if I like, don't hit the five days a week, I feel like, gross. So now it's so ingrained in my routine that if I don't do it, it feels weird. But it was like January of 2019, I had, like, the New Year's resolution, I'm gonna get in better shape. And I actually followed through with it, because I, you know, I had said that before in previous years, and kind of just did it for a few weeks and then gave up. Yeah.

Scott Benner 23:37
What does that mean? By the way, you're looking to change your weight, your muscle tone, your physical endurance. What was your goal? I would say body composition. Okay, moving stuff to where you want it,

Megan 23:49
yeah, like adding more muscle, trimming fat in certain places. I mean, probably weight loss was my goal in the beginning, just because I feel like, as women or girls, that's kind of drilled into our heads. Like, watch the number on the scale and now, like, I don't even know how much I weigh right now, I just go by how I look and how I feel.

Scott Benner 24:14
It's a pretty great thing not to have to think about anymore. Like, did your mom put that in your head? Or was it societal? Or where do you think you got it from? Yeah, I

Megan 24:21
think it was societal, like, I grew up in, you know, the 90s and early 2000s so, you know, I graduated high school in 2007 and the look at that time was skinny. It's not like it is today, where they're like muscle mommies and, like, it's cool to be, like, muscular now as a woman that just wasn't a thing or a body image that was widely talking, yeah, accepted back then.

Scott Benner 24:51
Interesting. So, like, so you make this decision in would you say 2019, for your New Year's resolution? Yeah, okay, and you're. Go for it, and this time you don't it goes more than a few weeks. Do you know what the first thing was that happened that hooked you, that kept you wanting to go?

Megan 25:07
I started noticing, like definition in places where I was never able to get it before. And I think the only reason was because I just wasn't consistent enough for a long enough period of time. So when I did start seeing results and like, Okay, well, what's it going to look like in another four weeks, or, you know, another 12 weeks or six months? So I think that's what initially

Scott Benner 25:34
hooked me. Okay, yeah, that's awesome, just seeing some sort of progress. Yeah, yeah. Did you go by yourself? Did you have a buddy? Did you like? How did you make the decision to like, I mean, did you, you know, pair up with somebody to keep you, you know, focused on it.

Megan 25:51
I hired a personal trainer to do, like, three days a week. I think it was just 30 minute sessions. It wasn't even super long. What also helped me stay consistent was like, I'm spending money on this, and I might as well go to these sessions, because otherwise, you know, what am I spending this money for? Yeah. So that was also a big motivator, especially in the beginning, like, I don't want to waste my money, so I might as well go right

Scott Benner 26:20
and did you tell people, like, I do that sometimes I'm like, I'm doing something. I'd say it out loud so I can't, like, back out of it. Yeah, yeah, that too. That is helpful sometimes. I mean, if it doesn't work out, it probably just feels like more pressure. But I do it a lot with the podcast. Like, I'll get on here and say, like, like, what's this thing that I want to do with the podcast that I know is a ton of work, and it might not work out, and it might end up being a waste of time. Like, let me just say it out loud, and maybe that'll make it happen. You know, yeah, it does help, yeah. Would you consider that your, like, your gym routine is, like, anaerobic? Is it more weight related? Is it, you know, aerobic? Like, you know what I mean. Like, how do you like, was it resistance, or is it a little mix of everything?

Megan 27:01
I would say, for the most part, it's weight training. I just started incorporating some cardio back in just because it's summer, I want to, you know, cut a little bit of fat, and I've also dropped my calories. So that's also a big part of it, is the food. Foods like 70% of your your progress and your change. So if that's not calibrated correctly for your body and your goals, I think that's where some people get hung up. And they're like, well, not seeing results, and I'm doing these workouts, and I think that's a big point of frustration for people, is, if the food isn't correct and calibrated to you, you're not gonna you're not gonna see the changes you want to see.

Scott Benner 27:48
So was your nutrition solid before the gym or to going to the gym teach you to work on your nutrition?

Megan 27:54
I think I was eating the right foods. I just wasn't eating the right amounts, like I definitely wasn't eating enough protein, and overall, I just wasn't eating enough calories for muscle

Scott Benner 28:07
growth. Okay, that's interesting, yeah. How do you figure that out? By talking to somebody at the gym, or just by, like, working out, going, I'm putting a lot of effort in this, and I'm not seeing a return. Well, both, yeah,

Megan 28:20
I started, yeah, I started noticing kind of, like, a plateau where I'm, like, I'm not seeing, you know, as much change as I would think that I should be seeing. And I think I mentioned, you know, what I was eating to somebody at the gym, and they referred me to, she's not a nutritionist, but she has, like, a nutrition certification so she can calibrate your macros for you. Okay, that made a huge difference in results. Oh,

Scott Benner 28:49
it's awesome. I didn't know we were going to talk about this, but I'm glad we did, and we are, because, like, Jenny and I are in the middle of putting out a nutrition series in the podcast right now, so it's been, just been, only been going on for a couple of weeks, but she's a, she actually is a nutritionist and and she, she's, like, always wants to talk about this, but it's funny, like, you know, I've kind of talked about this privately and not really said it out loud, but we wanted to do it earlier, but we really felt like I had to build up more of like, I had to build a bigger fan base up and more like, trust with people before you start, because once you start talking about how to eat with people, man, like it, people get pissed about that. You know what I mean? Like, yeah, I wanted the listeners to know. Like, I'm not telling you what to do, and I'm not judging you like that. But here's what Jenny thinks like this. You know, here's what I've learned, you know, but here's what she knows. And I hope this helps you, and if it does, that's awesome. And if, and if you're mad that you hear me saying Doritos aren't good for you, then I mean, hopefully you won't just leave and ignore, you know, your health in general, like, anymore, like, say, but yeah, it's a real feeling, because I you. You know, I made a misstep a few years ago. I, you know, some would say, some people say no, but like, you know, we just put out, like, I think, like, a seven or eight episode Pro Tip series for type twos. And the idea really was Megan, just like, Listen. A lot of you listen and think that this podcast is helping you with your type one. You must know people living with type two. Here's some content you can show them. And yeah, I had, I don't want to say exactly how much I think, but I lost a fair percentage of listeners, you know, basically type ones who are like, you know, I don't want you talking about type two diabetes on this podcast. And it was like, so you now, you know that that can happen. Like, you get nervous when you're like, Hey, we should talk about nutrition next. And I like, party is like, like, this is what people probably, you know, a lot of people don't know about like, you're talking about it now. Like, who would think if you didn't know, who would think, yes, I'm eating protein, but not enough, or, you know, I'm trying to lose weight and build muscle, I need more calories. I don't think those are common sense things like, all the time. So, yeah, it's like, almost counterintuitive, and people do like, they take,

Megan 31:06
like their food and their food choices, like,

Scott Benner 31:10
like politics and religion. Yeah,

Megan 31:13
it gets super personal sometimes. And I just, I don't know, because if you're making on some level, I feel like they have to know that what they're eating isn't the best or optimal. I don't

Scott Benner 31:26
know. I've talked to a lot of people. Megan, I don't always think that's the case. Like, I take your point like, you think, Well, nobody's having a handful of, like, jelly beans, and being like, this is very healthy for me. But I also don't think that they think, Hey, did you know there's, you know, I don't know, 12 tablespoons of sugar in that soda you're drinking. Like, I don't think that's the thing people know either. I think it can be in the middle a little bit, like, some of it's just, like, you know, a little blissful ignorance, like, I'll just, I won't, you know, I just, I'll ignore this, and it'll be okay, because I love the way Ho Hos taste. I really don't know. Like, I grew up in a world where this was food, it was given to me, and I don't know any different. I used a couple of examples recently, but one of them that I think is just really important is that, you know, I told Jenny, like, you know, when I grew up, there was this giant tub on top of the refrigerator. It had a scoop in it and a powder, and you'd put, like, God knows how many scoops into a gallon of water and, like, just fill it at the sink and shake it up, and you drank that, and it was just, like, pure sugar water. And like, that's what I drank, like, every time I was thirsty, that's what I had. I genuinely did not know that wasn't good for me. So, you know, who knows? Yeah, I can see that too, especially if that's just how it's presented, yeah, how it's always been, yeah. So your note here says it's great. I can't wait to hear what you want to say about this. What do you have to say about Jim bros?

Megan 32:49
Oh, my God, I forgot I wrote that. So, I mean, it depends on the level of like Jim bro. I guess an extreme example would be, there's this guy that goes to my gym. I see him at least three times a week because we seem to go for our workout around the same time, right? And he's like, super intense with his reps and stuff. And he's like, he's like, screaming and like, making all these weird noises, and like, I can hear it over my earbuds, and people are looking at him. And then he's got this, this guy following him around with like, a camera, like an actual camera, not just like a phone. Yeah, he's doing something, right? It's a camera. I mean, I I'm assuming he's probably competing, or has competed in the past, and he's, you know, gearing up for another competition.

Scott Benner 33:49
But like, you think he's just making content, maybe,

Megan 33:54
like, for himself. Somebody's walking around filming him,

Scott Benner 33:57
like, it's like, if he's filming all this and not putting it somewhere. I'm I'm even more worried now,

Megan 34:02
yeah, yeah. Like, what are you doing with it then? But yeah, so there's, there's gym bros like that. There's like, gym bros that. There's another day where I'm, like, I have one more exercise left, and it was the leg curl. And for whatever reason, there were like, three dudes just hovered around this machine. None of them were using it, and then one of them had, like, his shaker bottle on it.

And just like, this is the last

thing I need for my workout. And then I'm done, and you guys are just like, standing there, and I need that machine. Do

Scott Benner 34:38
you like, say something to them? Or do you feel uncomfortable at that moment? I did

Megan 34:43
finally, yeah. Like, are any of you using this? And they're like, oh no. And then they walked over to another machine and hovered around it. And I don't know what they were talking about,

Scott Benner 34:51
but is there a lot of what they call mansplaining going on at the gym?

Megan 34:56
I've seen it before, but not I. Well, I guess there was one time somebody felt the need to come over and tell me how to use the hip thrust machine, and I didn't really appreciate that very much. You

Scott Benner 35:12
think you were being hit on? Maybe?

Megan 35:15
No, that's thing. No, it's not that. So, yeah, the form is, I mean, once you get it, it's it's easy, and it's literally, like, how it sounds, it's a hip thrust. And he's like, I think you should do it like this. And he was, like, hyper extending. I'm like, you don't think he was

Scott Benner 35:32
hitting on you don't think he was just trying to, like, take you out or get a number or something like that, maybe. But you aren't up for that. You already have a three legged cat. You don't need his pets. Yeah, yeah, exactly. You know, are there women that are like that at the gym too? Like, very loud and boisterous? Is it a big gym?

Megan 35:52
It's a local gym. It's not like a chain, and actually they it's not air conditioned. It's kind of like an open air gym. There are a couple of industrial fans strategically placed to kind of keep air moving, okay, but today, it's like upper 80s here, and you know, it's just a couple of fans in there. So I'm kind of not looking forward to you get used to it eventually. But fortunately, the the weather here went from like 70 to like 85 in a day. And I just haven't, like gotten used to the warmer temperatures yet. Yeah, and then trying to work out in that, like it's an adjustment period.

Scott Benner 36:41
Is that them being cheap? Is that a theory about working out like that? You want it to be warmer? I feel like, like, back when Arnold was in his prime, I feel

Megan 36:51
like he was probably working out in a gym without air conditioning. And I think maybe they're just trying to be like old school. The building that the gym is in, it looks like it used to be an old, like, kind of small warehouse. So maybe it's not even, like, you can't even put an HVAC system in there. I I mean, I wouldn't know, but I'm sure it also doesn't bother them to not have an AC Bill, I'm

Scott Benner 37:21
guessing that. So we were talking to your father about about maybe getting a pump. Yeah, but I was wondering, how often do you guys talk? And how often is that talking about diabetes? Like, does he check in with you still, or do you check in with him? Oh,

Megan 37:36
yeah, yeah, I would say that we probably talk at least once a week. I'm definitely a daddy's girl, and I'm pretty sure I'm his favorite child.

Scott Benner 37:44
Well, I'm sure you are, yeah, yeah, yeah. So yeah, we talk regularly and pretty frequently. And have you ever had, I don't know what to call it, pushback about these conversations, like, even when you were younger, you ever have times and you're just like, I don't want to talk about diabetes. About diabetes. Or have you always had that relationship with Him?

Megan 38:06
We've always had that relationship, I think just because, you know, it's a common experience between the both of us. And like, he can't talk to my other siblings about diabetes the way that he can talk to me about it. And same thing, like, they just don't get it

Scott Benner 38:23
enough context, yeah, yeah. And so you guys are, I hate to say diabetes, because that sounds goofy, but like you guys are, like, you have, like, a little, a little club about diabetes, yeah, yeah, to get a secret handshake, that'd be awesome. We should, yeah, I don't know why you haven't thought of that already. I know, do you let other family members who have type one into this group? Like, do you have, like, a group chat where you talk about type one or anything like

Megan 38:46
that? No, my aunt, that's type one. She was misdiagnosed. I as Type Two for, I don't know how long of period of time it was. She just got her diagnosis, I think within the last like five years. So she's relatively new to it. And then my grandma is type two, and she's like 90 pounds and 88 years old. Her a 1c is kind of just sat at like 5.7 Okay, for the last

Scott Benner 39:15
chugging along, doing okay. Yeah, yeah. In your note, you just said resilience. You didn't say anything else about it, right? And I'm wondering, I mean, you thought to put it in here. You have big thoughts about, you know, what this life has taught you, or things you've taken from it?

Megan 39:32
I mean, I think a lot of it, just like I said before, comes from diabetes, like, you know, you you have a choice, you can take care of it or you don't. I think it's just much easier to choose to take care of it. And you know, it's, it's not a cake walk. And that's definitely taught me some things, because life isn't always a cake walk either. You just have to keep going. Going,

Scott Benner 40:00
can you like, think of specific times when it was harder than others and you had to push through? Or has it always been like, because, you know, some people might be like, Well, yeah, our dad has it too, like they have a connection, like she gets support from that. Like, it might be easier for you to say, like, this isn't that bad, yeah. Has there been moments where you're like, I mean, you mentioned college, but have there been other times?

Megan 40:22
Yeah, probably college. And then I was like 24 I happened to be walking around a pool. I stepped on some kind of rock on the bottom of my foot, and it made a little scratch on my heel. I didn't think anything of it, but it ended up getting infected, and I had to be hospitalized for that. That was awful. And obviously that was at the same time the, you know, I wasn't necessarily in the best control with my diabetes, so that that was day 1c

Scott Benner 41:01
time. Yeah, it was okay, yeah. So, just for clarity, for people, you're not saying you have neuropathy and you couldn't feel the cut, it just it didn't heal and it got infected.

Megan 41:09
Yeah, yeah. It like for a long time, it didn't seem like it was getting worse, but it also wasn't healing. And then one day, I just spiked a fever. And you know, my foot was so small and I couldn't see my ankle bones anymore, so I had to be admitted, and I was in the hospital for four days that had to be debrided, and I was on IV antibiotics the entire time I was in the hospital, and then they sent me home with home health, and I had to be on IV antibiotics for the next Four weeks for it to clear

Scott Benner 41:41
up, and you attribute that to the higher blood sugars,

Megan 41:44
yeah, I think the reason it took as long as it did to heal and then the fact that the infection ended up, it was starting to disrupt the tissue, like surrounding my bone, So it got pretty deep.

Scott Benner 42:00
Okay, jeez, that's scary. Oh my gosh.

Megan 42:03
Not that I didn't take it as seriously as I should have, but I just didn't understand the severity until, like, after I was out of the hospital and I was still on tethered to an IV pole at home,

Scott Benner 42:16
did that, you know, quote, unquote, scare you straight? Or did it take more than that?

Megan 42:20
Yeah, yeah, that was a big wake up call. Like, I don't want this to happen again. I don't want to be like, the stereotypical, like, diabetic without a foot or toes, and like, like, I don't want to be that person and like, I'm better than that. Like, I know what I am supposed to do. I know how I'm supposed to do it. I just like, I need to do it. And, you know, basically, grow up.

Scott Benner 42:47
Yeah. Do you have any context, backward looking context, about why a person might just, for years, stop doing the thing they know they're they should be doing?

Megan 42:57
Burnout would be one. But I also think there's probably, like a fear component to it, like, you know, I'm afraid, you know, if I do this, and you know what, if I still fail, or that's a good question, yeah. But I think for me, at least, I feel like it was burnout and probably some immaturity,

Scott Benner 43:22
okay? And then you have the foot thing, and then you say, Oh, I don't want to be like this. And then you just kind of like, it's like everything else in life, like, you get more mature, you get more context. You make different decisions,

Megan 43:33
yeah, yeah, looking, looking back on that, I'm like, Why did I just not go to the doctor when, you know, like, a week after it happened, once I realized it wasn't healing

Scott Benner 43:43
right before you stepped on that stone or whatever you stepped on at the pool. If I would have said to you, hey, the management that you are currently employing for your diabetes is such that if you get a cut on your foot, you're gonna end up in the hospital with a massive infection that almost gets to your bone. Would you have believed that? Or would you have said, No, I'm doing fine. I don't

Megan 44:02
know if I would have believed that at the time, yeah, yeah. Because at the time I felt like, yeah, you know, it's not great, but I'm not it's not 13, it's nine, yeah. So I kind of tried to rationalize it that way, like, Yeah, I know I can do better, but it's not terrible, or I'm not as bad as, you know, some people.

Scott Benner 44:24
It's the rationalization that I always hear in people's stories like this, no matter what, it's sort of like, well, yeah, sure, but it's not like this, or it could have been that, or I should have, you know, I Yeah, sure, I didn't do that, but also I'm okay. And then you get that kind of reinforcement every day, when you wake up and you're not sick, right? You're like, yeah. Like, you know, they say this is bad. My a one sees 10, but I feel fine, yeah, yeah, right. Like, that's maybe they're wrong. Maybe I can live like this. Maybe it's just not something that I'm being forced to look at. Yeah, yeah. Exactly that thing a lady told me just the other day I was interviewing her about, like, you know what forced her to look at? Her care was like, she had a miscarriage, and the doctor just, very clearly was, like, your blood sugar is too high. That's why the baby discard, you know? Yeah, it still doesn't like, it doesn't flip a switch. I have to tell you, the human psychology I'm just like, I'm going to be endlessly enamored with forever and ever. I think, like, you know, like, I put up an episode today, and I just, I found myself thinking, like, I'm gonna go online and tell people about it, because it's so fascinating to listen to this person, you know, talk about how her mom hid her diabetes from the family and then passed away very early, probably because she wasn't taking great care of herself, because she was very focused on nobody knowing, like she literally thought her kids didn't know she had that type one. And then, but, yeah, right, it does seem crazy, right? But then I'm talking to the, you know, the woman who's now an adult, and she didn't think it was that crazy. And then you start picking through her life, and you realize she hides a lot of things from people, and, you know, you're like, Oh, this is, like, a little familial. Maybe it's a little like, you know, just the psyche of the family, or whatever, like, burned in, who knows exactly, I don't know, like, God knows how she got there. But every story she told ended up being a story of how, like, they hide things from each other. And then you can hear her as she's, like, talking through it, going, Oh, yeah. Like, that is another example of that. And I make it just makes me wonder, like, it's months later, is she, like, out there actively trying not to do that, or is it just have such a strong hold on her that it went, you know, it goes right back after you stop talking about it. Yeah. Anyway, that part of the human mind and the experience. I don't know if I'll ever hear an answer, but it's fascinating. To talk about and to wonder about, yeah, well, I think when you

Megan 46:49
you grow up that way, that's what you're surrounded by. That's all you ever know. I think it takes you know, I think stepping away and looking at the way other people, you know, interact, and how they behave, and I think that makes people maybe start to question, like, in what I you know, is my behavior normal, or am I the weird

Scott Benner 47:14
one, like, and it happens to everybody. I mean, if you're listening right now and you're thinking like, oh, Scott's, you know, speaking from like, it doesn't happen to him and his kid or whatever, but it happens. Of course, it does. Like, you know, my kid doesn't listen to me, just like every other kid doesn't listen to every other parent. I hear people say all the time, like, oh, Arden, so lucky you have such a grasp of this blah, blah, blah, you're so willing to help that doesn't change anything. And by the way, the person that wrote me that note, if they were 20 years old and had diabetes, they wouldn't listen either. They'd be like, ah, that guy is my dad. He doesn't know, like, you know, like, that kind of thing. Like, I've given people advice about, like, saying, like, very specifically, like, saying to a kid, like, Look, if you're having trouble right now, you can offload some of that to me. I'd be happy to, like, like, shoulder some of this for a while. Tell me what it you know, what? What of the things that are burdening you right now? Do you think would allow you to reset and get out of this feeling like, if somebody else was handling it for you for a while, and I've told people, like, I would go to my kid and say that, like, say, look, you're struggling with your diabetes right now. That's fine. Like, you know it happens. Let me help a little bit with this piece. Let you reset a little bit. I've said that to Arden recently, like, you know what I mean? Like, is there something here that I can, that I can help you with? She's got a lot going on, you know, and like, you can, like, she's quiet and listens, but she doesn't, like, turn to me, like, it's a, you know, like, a Hallmark movie, and go, Father, thank you for that wonderful offer. That would be great. Here's the thing that I think would help like it's nothing works that way. No, it doesn't. I think one of the most interesting things about diabetes type, one especially, is that it it speeds up your timeline, such that it gives you an in the moment. Look at some of the things that happen in a life without diabetes stretched out over decades, aging, for example, right? Like, or the decline of health, it's an easy one, right? Like, you can get up every day and smoke a cigarette, drink the wrong thing, have the wrong food, not exercise. You could go 2030, years and think, I'm beating this thing. And even if your body starts to decay in certain ways, our minds are set up so that we we ignore that, and we press on, right? We're resilient. We keep going. Then one day, you're 65 and I don't know, you know what I mean, like your kidney falls out of your side, or something like that. And the doctors like, oh, you know, that's because that thing you've been doing for the last 30 years, right? Yeah, but in diabetes, type one really, especially, don't do the thing you're supposed to do, you're going to get a pretty what would in normal life be, a 30 year result. You're going to get that result much more quickly. Yeah, and I think that experience is sprinkled about diabetes in tons of ways, in interpersonal. Ways and psychology, depression, happiness, everything gets sped up a little so that you can kind of see the results sooner than you normally would. Yeah, and I think then it's up to you, the person living that life, to either decide like I'm going to use this as directional and say to myself, Okay, look, I know if I do this, this and this and this, 30 years from now, that thing falls out, but now it's happening a year from now, or six weeks from now, or three months from now, when I get my a 1c again, I'm going to take that information, not feel burdened by it, but feel lucky to have it make adjustments, do the thing, or you're going to be in that situation where you say to yourself, well, you know what? This is unfair, and I give up, like, I think that it sort of goes like, one way or the other sometimes, and then some people give up, but something shocking happens to them, and they're snapped out of it, you know? Yeah, some people just find the rhythm, and they just ride that rhythm right till the end. So I don't know, I don't know why I said all that. That's all I had to say. I'm done. Now, is there anything that you'd like to respond to there, or anything else you'd like to talk about? I mean,

Megan 51:11
I think what you said is pretty accurate. I mean, for me, it was, you know, it was the whole foot thing, like, okay, I can keep doing what I'm doing, and you know, the results are probably going to be similar to this or worse.

Or, you know, I can put in

some effort and get my a 1c to a better place, feel better, be happier, be healthier. And you know, it might not always be the easiest way or the easiest choice, but it seems like it's worth it to at least try, then to just completely give up, and, you know, have a poor quality of life or outlook on life, because I just don't want to do the things that I am supposed to do, right?

Scott Benner 52:03
And those things, by the way, are bringing you benefits in the moment as well. It's not just like you're not just avoiding the 30 year problem. Yeah, you know, you're probably seeing less insulin resistance because you're so active, right? You eat a certain way, so you probably don't see a ton of like, crazy spikes that you're fighting with for six hours that end up with a low at five o'clock in the morning like you probably avoid a lot of that stuff by by living the life this way. Is that right?

Megan 52:27
Definitely had to dial back my basal rate and stuff when I started adding the cardio in, and then, obviously, with the reduction of calories, there's less of a need for insulin just because of that. So there are definitely benefits, and it definitely makes aspects of diabetes easier, just by, you know, coupling it with activity and correct calories for for my body,

Scott Benner 52:55
yeah, do you not work out on the weekends? Or, like you said, five days a week. When do you not work out?

Megan 52:59
I try to do Monday through Friday, like everybody else, I struggle with motivation sometimes. Yesterday I didn't go, so I'll go today through Saturday. I prefer to, like be finished, like Monday through Friday, and then have Saturday and Sunday to do whatever I want. But yeah, no, however, I need to fit in five days. That's what I'm going

Scott Benner 53:23
to do. How many days do you have to miss before you see in your insulin needs that? Oh, I'm getting a benefit out of this activity, and now it's gone and I'm needing more insulin, or I'm having other issues. Is there a gap of time where it starts to turn on you? Or,

Megan 53:37
yeah, actually, that's a good question. It's probably around day three or day four. Like, if I've not gone to the to the gym, not done anything active, including, like walking steady state cardio, like, if I haven't done anything in three or four days, I'll start to see my blood sugars rise.

Scott Benner 54:01
Yeah, the activity is super important, especially Yeah, for this, yeah, no, I agree. I appreciate you coming on and talking about all this. Can I ask you, like, what motivated you to ask to be on the podcast?

Megan 54:12
Well, because I've obviously listened before. I don't think I've listened to every single episode.

Scott Benner 54:18
Why? No, I'm sorry.

Megan 54:21
No, I haven't, but no, I've, I've listened to it consistently, probably for at least the last couple of years. And I just think some of the stories on here are so interesting, and the perspective of other people, and you know, some of their other stuff going on, and how they juggle diabetes and their life experiences. And I don't know, I don't think I'm particularly interesting, but I thought if me sharing my experiences and some of my story could help somebody and they're listening to it, then why not? Oh,

Scott Benner 54:58
that's awesome. I appreciate. Oh, that's i. Some of the best episodes come by. I'm sorry that you don't think you're particularly interesting. Should I call this episode not particularly interesting? You think that'll really grab people's attention?

Megan 55:08
Yeah, you're Jim bros. Well,

Scott Benner 55:12
you know it's funny, like, I'm always entertained by the idea that people are like, I know this isn't good. I actually, I have a note from the other day. I know that. I know our conversation was terrible. You don't, don't feel any pressure to use it. No, that happens like, more frequently than you would think, like, a note comes from somebody, and I'm like, I responded back. I was like, I just said, like, You're being silly. Your episode was awesome. Like, stop it. Yeah, I just, I make the same point over and over again to people. I was like, you listen to this podcast. You've heard stories that really helped you? Do you know those people also thought their story was not interesting and not valuable? Talking about human psychology, like, what is it about people that does not allow them to just believe that their actual story has value?

Megan 55:52
You know, I don't, yeah, interesting. That's a good question. Yeah,

Scott Benner 55:56
I don't know what's wrong with us. Trust Me, I'm Trust Me, I'm lumping myself in with everybody else. It's fascinating to me. Nobody ever jumps off and is like, wow, that was awesome. I can't wait for people to hear that, because I really brought it.

Megan 56:11
Okay, good. I'm glad I'm not the only

Scott Benner 56:13
one. Yeah, no, trust me, this is a pretty common feeling. And I thought you were great. Like, I really think this will help people. And, you know, there's plenty. I mean, especially now while, like I said, talking more about nutrition, you know, Megan, like, if you've listened to enough of the podcast, I think one of the main things that I focus on is that I don't think I'm in charge of how people eat, nor do I think that anything that I or anybody else says is going to like, change somebody's opinion about how they're eating, right? And, you know, just because you grew up with a bucket of sugar water in your refrigerator that somebody told you was juice, you know, like, doesn't mean that 20 years later, if your kid gets type one diabetes, they deserve to have an A, 1c in the 10s, like, so my thought here is everyone listening is going to have more success health wise, if they understand how insulin works. Yeah, that's my base goal. Like, I just want you all to understand what your basal does. You know how to Pre-Bolus? Like, you know what different glycemic loads and impacts. Do you know what to do when you find yourself in the mall and you're like, I'm gonna eat a Cinnabon? Do I think you should be running around eating Cinnabons all the time? I do not. But if you go to the mall and you're like, I'm getting a Cinnabon, first of all, you should know there's like, 160 carbs in that thing. Like, that's not even a thing people would guess. You know. And you should know how to, like, attack it without making yourself super low later, or, you know, giving yourself a 400 blood sugar that you're screwing with for the next six hours. Having a Cinnabon shouldn't put you in that situation.

Megan 57:52
Yeah, it shouldn't ruin your

Scott Benner 57:55
day. And at the same time, like when you start out telling people like, this is how insulin works, apply it to your eating style. I mean, the rest of that is, you know, no lie, ate a little better and thought more about your micro, macro nutrients. And, you know, making sure that you know your your nutrition was, you know, a little more spot on. At least this whole diabetes thing gets a lot easier.

Megan 58:21
Yeah, no, it really, really does. You said Cinnabon, and for whatever reason, it made me think of my 600 pound life. Do you watch that

Scott Benner 58:29
show? I've seen it like once or twice, not a whole, not all the way through, I but I know enough to know what you're talking about.

Megan 58:35
Okay, yeah, oh, it's just crazy. Like, the amount of, just the amount of food that they eat like, it's, it's just crazy. I we binge watched that show me my boyfriend. Well, listen,

Scott Benner 58:47
I can tell you that Jenny and I, right now are making a series called Bolus for where people just sent in different foods they don't know how to Bolus for. And so, like, Jenny and I are, like, doing like, 10 Minute Talk throughs on everything. But we're also, like, you know, we're pretty fresh into it. We've only been doing it for a couple of recordings now. And mainly we're getting through like, cereal, like Cinnabon, which is why it's on my head right now, you know, like, that kind of stuff. Like, eventually we'll get to, like, you know, broccoli and stuff like that. It's really something like, I've never looked to see how many carbs are in a Cinnabon before. Or, you know, like, it's not a thing, like, it's not a thing we've ever run into. I've never thought about it, but I think top of my head, if I'm remembering the recording the other day, was literally, like, 165 carbs and, like, in a stunning amount of a stunning amount of fat, and, yeah, and just, you know, and all and way more salt than you would think,

Megan 59:42
yeah, yeah. Salt isn't everything well.

Scott Benner 59:46
And then Jenny starts talking about, like, look, you know, there's that magic mixture of sugar, salt and fat that just makes your body go like, Oh, my god, yeah, yeah. Because, like, I mean, listen, I bake a lot. You do not need a lot of salt when you're baking. King. But I guess somebody figured out, like, if there's this much fat and this much sugar and this much salt, you're gonna go crazy when you're eating this

Megan 1:00:07
fat, sugar, salt, and, you know, you've seen those, like, I think there were snack wells, I think the green box where it's, like, zero fat, but then they dumped more sugar in it. Or, like, if something has no sugar, it has a bunch of extra fat. Like, you can't take both out. You have to, you know what I mean, yeah, it

Scott Benner 1:00:31
ends up being cardboard. Nobody wants it, yeah, yeah. I bring up all the time around here, there's Italian ice places. And, you know, always a huge sign on the front that says fat free. And I'm like, Yeah, but your body's gonna take that sugar and store it as fat. Exactly, yeah, it's not in there now, but it's gonna end up as fat. Yeah, you know, it's just marketing. And I think the same thing with the, you know, I'm not even picking on Cinnabon, but like, you know, they're trying to make a thing that when you bite into it, you're like, I'm very willing to give you $10 for one more of these, like, you know, like, that's what they're trying to accomplish. So I don't think that we think about food that way. I don't think that we think about like, this is engineered to like, you know, like snooker you into having more, or to feel like, almost like, you know, having an addictive like, responses to it. And so, you know, so we bring it up, and hopefully people will be interested in it, and, you know, not yell at us for telling them how to eat, because I certainly don't. I mean, it's your life. I am a live and let live person to the end of the to the end of time, right? Like, I'm, I'm for your personal freedom. And if your personal freedom runs the gamut, it's not for me to judge, nor do I even have an opinion about it. Like, so like, do whatever you want. But you know, just like with the Bolus thing, I just want you to know what you're like, what the reality of what you're of what you're involved in is, and then after that, you're an adult, you do whatever you want. You know, like, yeah, I don't care. I'm happy for you if it's going well and if it's not going well, and you're looking for something, and then you find it here. I'm happy for you, too. And if you want to eat a Cinnabon every day, and, you know, go down in a blaze of glory. Like,

Megan 1:02:06
yeah, eat your Cinnabon. Eat your Twinkies. Or don't, like, go for you.

Scott Benner 1:02:10
Like, go if that's you, if that's you, that's you. Like, I don't have like, I have no problem in the world with that, you know, listen, it's, um, you know, it's a way online that people make content that's very popular, but they just, you know, they just put you into a different camp, and then get people to fight against you. So they say, you know, somebody's like, you know, I'm a gym person. I work out. Everybody doesn't work out. Doesn't care about themselves and their assholes and blah, blah, you know, like, and what do you get? You get a bunch of people who agree with that, and then, then, now you have an online community, and then you can charge them $20 a month or something, right? Like, and then there's the other people on the other side that are, like, That's bull. Like, I can live any way I want. Like, you know, the right way to eat is vegetarian, but and then they do the same thing, and then they market to you and sell you stuff and like, I know you don't think that's what's happening to you, but trust me, that no one who's talking to you about like keto gives a about keto. They give a shit about building a community that they can make money off of or sell you something or whatnot. So exactly, trust me, I'm not selling you anything. I pay for this podcast the old fashioned way advertising. I get somebody else to pay for this so I can sit here and do this. You all can go do whatever you want, just even if you don't buy anything, just click on the links once in a while. Everything's great. Then, you know, it keeps me It keeps me going, and keeps these conversations happening. Anyway, Megan, any last words?

Megan 1:03:27
For whatever reason I had cereal and protein shake on my mind, I might send you and Jenny in that for the

Scott Benner 1:03:33
Bolus four series. Yeah, send it over like email to me.

Megan 1:03:37
Okay, yeah, because I've said it's such a pain in the ass to dose for I feel like I do the Pre-Bolus correctly, and I know that it's high protein, high carb meal, so that factors in as well. But, like, I just can't seem to get a handle on it. And it's, like, one of my favorite, like,

Scott Benner 1:03:53
breakfast specific, like, down to like, you know, brand names and stuff like that. Okay, and send it over. And I will, I'll add it to the list. I absolutely will just email it to me. Okay, yeah,

Megan 1:04:04
definitely. No. It was awesome talking to you. I was a little bit nervous. It was like talking to a famous person.

Scott Benner 1:04:08
That's ridiculous. Let's, let's stop being silly. Okay,

Megan 1:04:13
it does. It feels like that. It's weird. Yeah. Well, after

Scott Benner 1:04:16
this, I'm going to take Arden to an appointment and then come home and do some laundry while I'm editing and making social media. So I, trust me, I'm not famous. Listen, we all learned how Gene Hackman died recently. He's famous, and I think he got eaten by rats. So, like, you know, like, fame's not, I don't know. I don't think so. I think, I think I'm I think I'm conflating something. Hold on a second. You want to find out real quick. I believe. Hold on a second. Gene Hackman got eaten by rats. No, he got, like, a, first of all, he's 95 I didn't know he was that old. Yeah, like he was. He's one of those guys who's like, 20 years ago, is like, I can't act anymore. And I was like, oh, but you're great. Okay, hold on a second. He. The actor had a biventricular pacemaker. He had Alzheimer's, maybe neurodegenerative features consistent with Alzheimer's. The autopsy, excuse me, autopsy showed severe a throw salistic and hypertensive cardiovascular disease, I think. But it's something weird about how he Oh, a toxicology report found trace amounts of acetone and Hackman system when he died, the solvents used for chemicals also product of a diabetic and fasting induced ketoacidosis. Hold on a second. That's not what I know, because his wife died too at the same time, but she was much younger than him.

Megan 1:05:39
Oh, okay, I remember, I kind of remember hearing about this. Now,

Scott Benner 1:05:43
how did Gene Hackman wife? There's something about like they found,

Megan 1:05:49
like rats were eating them after they died. Yeah, she

Scott Benner 1:05:54
No wait. She died from Hantavirus pulmonary syndrome I got, I'm telling you, this has got something to do with rodents. Yeah. Rodents. I don't know. I feel like we're watching Ratatouille, but, like, a really bad version.

Megan 1:06:07
That's so weird, because I just watched ratatouille last night. Why would you

Scott Benner 1:06:11
not awesome movie. It is so cute. Like, No, trust me, he wasn't well. He had, like, extensive heart disease. He had other things. Why can I not find this all of the dog was dead too.

Megan 1:06:24
Oh, that's so weird.

Scott Benner 1:06:27
Okay, how did his wife get Hantavirus? Hantavirus are primarily carried by rodents. Humans can become infected after exposure to urine, droppings or saliva from an infected rodent. So, so anyway, I don't know if that's what ended up happening, but there's a lot of talk about that, and it just made me think, like they were so they were older, and, you know, there was they obviously had, like, cleanliness issues in the house. And my point is, that's Gene Hackman, and he was famous. He really is famous, and still his life was not that exciting. That's my point. So imagine me and how not exciting my life is. Was my point? If Gene Hackman can have hunt the virus in his house, imagine how crappy my life is. This was my point. Megan, it took me a while to get to it, but that is my point. So I mean, you

Megan 1:07:15
got there, but calling me famous is

Scott Benner 1:07:17
ridiculous, is what I'm saying. Sounds

Megan 1:07:20
like he died from like the plague, is that the same thing like the bubonic plague, is

Scott Benner 1:07:25
that you and I together don't know. I can tell you that much for sure. I just sounds like there was, like they had an infestation of con some kind of their house. And I mean, she it sounds like, who knows exactly what happened? They're all dead. They can't even

Megan 1:07:39
ask the dog. I know, yeah, and then the poor dog too.

Scott Benner 1:07:43
They say a dog. When a dog dies, it takes forever for them to start eating, like a corpse in the house, like, if you die, your dog won't, like, start eating you. But if the dog's trapped, that's good. If you're if the dog's trapped there long enough, it eventually will, but if you die near a cat, they're gonna start eating your eyes out almost immediately.

Megan 1:08:03
Oh yeah, cats are dicks, like, they're like, they're not like dogs like, they're just, they're just whole. Sometimes,

Scott Benner 1:08:10
yours will take a little longer because it'll, I mean, it's gonna have to hobble to you, but that won't take much longer. So, yeah,

Megan 1:08:15
I know he'll have to come over with his three legs. And, yeah,

Scott Benner 1:08:20
all right, hold on a second.

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Scott Benner 8/21/25 Scott Benner 8/21/25

#1606 Winn Dixie Eggs

Caitlyn, now 16, returns from Episode 458 (“Cutting on Cam”) to share her Florida teen life with T1D.

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
Welcome back, friends. You are listening to the Juicebox podcast.

Caitlin 0:13
Hi, my name is Caitlin. I'm 16 years old, and I'm from Southwest Florida. If

Scott Benner 0:20
this is your first time listening to the Juicebox podcast and you'd like to hear more, download Apple podcasts or Spotify, really, any audio app at all, look for the Juicebox podcast and follow or subscribe. We put out new content every day that you'll enjoy. Want to learn more about your diabetes management, go to Juicebox podcast.com up in the menu and look for bold Beginnings The Diabetes Pro Tip series and much more. This podcast is full of collections and series of information that will help you to live better with insulin. Please don't forget that nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin.

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Caitlin 1:49
Hi. My name is Caitlin. I'm 16 years old, and I'm from Southwest Florida.

Scott Benner 1:52
Caitlin, you've been on the show before. How old were you the first time? Oh

Caitlin 1:57
my gosh, I don't remember. I was actually thinking about that last night I Oh, was I like, nine or 10, I think,

Scott Benner 2:05
were you on by yourself, or was there a parent with you?

Caitlin 2:08
I was by myself. And then towards the end, you had my mom come on for, I think, like, six or seven minutes, maybe. Do you remember what we call the episode, called cutting on cam, because I was talking about my

Scott Benner 2:20
brother. Oh, that's right, you made fun of your brother the whole time. Wait, yes, I did. That was how long

Caitlin 2:25
ago I'm looking I have no clue. Actually, I found it like not too long ago, but I forgot to look at the date I'm looking at

Scott Benner 2:35
it. It's episode 458, it was posted in March of 2021, which just means we probably recorded it at the end of 2020. Yeah, we did this during

Caitlin 2:46
covid. Yes, yes, I know. I remember we did it during covid.

Scott Benner 2:50
No kidding, 458, I think I put up 1555, the other day. Insane. All right, and wait And how old were you back then? 11?

Caitlin 3:00
Yeah, I would have been 11. That's

Scott Benner 3:02
crazy. Okay, all right, well, this will be fun. What made you want to come back on?

Caitlin 3:06
I mean, it's been a while since we've talked, and I'm also in high school, so a lot of things have changed. I guess. I don't know. I

Scott Benner 3:13
want to find out what changed. So if you had to, well, let's give people like a just a high level overview of yourself, like, So how old were you when you were diagnosed? I think I was eight, eight. So I spoke to you three years into diabetes. I believe. So, okay, all right, and now you're, gosh, seven years in eight. Eight years, yeah. How long does it feel like you've had type one? Feels like I've had

Caitlin 3:39
it my whole life. I'm not used to. Like, I can't remember what it was like to not have to Bolus before I eat, or having to change all my devices every three or 10 days. Like, I don't remember a time before that. I honestly don't remember anything pre covid.

Scott Benner 3:54
I'll say that you don't remember anything pre covid. How long were you locked away?

Caitlin 3:58
It's so weird. I will be told things, and I'll say, Was that before covid, and somebody will go, oh yeah, it was. And I'm like, I can't remember that. It's weird. I

Scott Benner 4:08
find that television feels different before 911 and after, and I don't know if that's real or just something that it may be like, I feel like, I don't know. Like, I feel like, like television was wholesome is not the right word, but I don't know. Maybe, maybe it's not that it was more wholesome. Maybe that it's that I feel less maybe I feel more jaded now, yeah, yeah, that's interesting. So you don't remember anything, bro, okay, well, hopefully nothing important happened those first eight

Caitlin 4:41
years? Well, I mean, like, I remember diagnosis, and then there's certain things, like, I have really good memory. I can remember things from even before I was three years old. I remember holding my brother in the hospital when he was born and I was two months away from being three and but just like little, tiny, simple things from school, like. School field trips. I don't remember them at

Scott Benner 5:02
all. Trust me, I don't remember anything from when I was that age. So it's just gonna get farther or farther away. In your memory,

Caitlin 5:07
it's mostly school things like school before covid was so different that I just like, I think I blacked it all out.

Scott Benner 5:15
Did you prefer it one way or the other? Do you hate the way school has become?

Caitlin 5:18
It's a big shift, I'll say, because everybody's so much older now, like, I remember like, being in middle school, and it was so different from elementary school. And then now, when I look back at it, I'm like, it's a lot different, because everybody's obviously older, so everybody's more mature. But then it's like, also a lot of things changed, because I went to my sixth grade year was the CO it was like, 2020, to 2020, 21 so we had masks, and there was a bunch of repercussions that we had to follow and or not, repercussions precautions we had to follow. So it was very different. It was a big switch. I'll say,

Scott Benner 5:52
I think you were melding together repercussions and precautions. When you say, I

Caitlin 5:56
do that all the time. Now it's really bad. You morph words. Basically, I don't remember what the word was, but it was actually like two weeks ago, I was mixing two words together, and I couldn't figure out what I was trying to say.

Scott Benner 6:07
That's fun. Hopefully you'll do that more while we're talking. Yeah. So what do you think has changed for you about diabetes since we spoke last though, I mean, what's your been your biggest shift?

Caitlin 6:18
Well, I'm on the instead of the Omnipod dash. I'm on the Omnipod five so and I have the app on my phone, which is so much nicer. I will admit that

Scott Benner 6:28
better than having to carry like a secondary device, yeah, it's

Caitlin 6:31
so much nicer. It's literally just in my back pocket, and it's so easy for me to access everything. And also, like, corrects for myself, which is nice. Yeah, you like the the automation, yeah, it's a lot nicer. And then also, I'm on the g6 I believe I was on the g5 when I last

Scott Benner 6:49
spoke. I think you very well could have been. It's a long time ago. Yeah,

Caitlin 6:54
we're trying to get on the g7 I've used it before, but never when it was connected to my phone, but now you can connect the g7 to the app, so we're trying to see if we can get the g7

Scott Benner 7:05
why would you not be able to do, you know, because we don't have any What? No. I mean, like, is your, like, insurance stopping you, or your doctor, or, I

Caitlin 7:14
don't know if she ever got a response from my endocrinologist, but she had asked, Oh, I see if we could. So we're not sure. I'm not sure. I think she probably knows, but I wouldn't there's

Scott Benner 7:23
probably a glitch in the system. Somebody asked somebody, and then somebody probably dropped the ball along the way, and then life gets busy, and you don't check in anymore. You're like, Ah, this thing's working. So you're, you've been automated with Omnipod five for how long? Maybe about a year. Okay, what are the big differences between automation and not automation? No, it's been more than a year, longer than a year.

Caitlin 7:44
I'm a liar. I don't know how long, but I think maybe three.

Scott Benner 7:48
Okay, that doesn't make you a liar, though. Caitlin, don't worry. But tell me, what's the biggest difference like is it around meals? Is it around activities? Where do you see the bigger benefits for yourself?

Caitlin 7:59
The bigger benefits is my blood sugar can, kind of, it will elevate itself, like, if it spikes up, it'll level out, which is really nice. I don't have to, like, always be messing around with it, or always looking because if it's high, it'll correct me on itself. But then also, if I were to put in, like, a correction, it'll take insulin away, or it won't give me anything, because it's like, we've already corrected it for you, yeah, which is nice, just the only, like, I guess it's not a good benefit. It's around activities, because it my blood sugar could spike because right before I go to practice, I eat dinner, which can be really early sometimes, like at four o'clock, because I'll have practice for like, four hours, and then it'll spike up. And then, as I'm working, it like doesn't know that I'm doing activity, so my blood sugar will drop, but then it'll also correct me, so it drops

Scott Benner 8:52
really far, I guess, four hours. What are you practicing to be an astronaut? What are you doing?

Caitlin 8:55
I'm a dancer on a competitive team, so we have a lot of practices.

Scott Benner 9:01
Okay, is that a lot of moving than sitting around and listening, or is it constant movement? It's a

Caitlin 9:07
bit of both. Towards the beginning, it's more like getting to know everybody and getting to know the choreography. But once we hit like, I think it's November, is when we really start to work, and we continue working up until May.

Scott Benner 9:23
So if you have a meal at four o'clock and you miss it on, like a Bolus and you spike up, then what happens during dancing?

Caitlin 9:31
It's usually drops. It's like a 5050 shot. Sometimes it'll level out, and sometimes it'll drop really low. It really just depends on what we're doing, because not every day is the same. Yeah, it kind of messes around a little bit, and that can be a lot, because I my mood tends to change a lot too. When my blood sugar is high or low and it's like, not really good for the people around me. I guess there have been times where I would get really agitated, especially around the littles, because I work with I volunteer. Here for some of like, the classes with the five and six year olds. And I am very good around kids. I will never yell at a kid, or I'm very nice, like, I won't yell at them or scream at them. And there have been times where I'd get really agitated, really quick, and I'm like, I'm sorry, can I step out of the room for just two seconds? And it's usually my blood sugar is the

Scott Benner 10:18
problem is it usually high or low? When that happens, it's usually high. Okay. Have you ever tried going to dance without eating and eating after dance?

Caitlin 10:26
It usually depends on the day, actually, because Mondays, I'm last this is, I'm talking about like last season, because we just ended in May. So last season, I was at practice from four to eight on Mondays. Tuesdays was six to eight, and then Wednesdays was six to seven. So Mondays, I'd eat at four. Tuesdays, I would eat at eight, and then Wednesdays, I would eat at like 730

Scott Benner 10:52
Okay, do you find your control better without an active Bolus and a meal in you while you're there?

Caitlin 10:59
Sometimes, because it usually sometimes on, I know, Tuesdays and Wednesdays, I would do this, it would drop, but then I'd be eating right after, so it would kind of like fix itself. But if I weren't to eat on the Mondays, when I was there from four to eight, it would be all over the place, like I'd be stepping out of the room every five seconds, because it would

Scott Benner 11:18
just drop. Do we get low? Because that a more active day?

Caitlin 11:21
Yeah, that's when I'm at practice. I'm, like, not sitting down for four hours. Basically,

Scott Benner 11:27
yeah, you're really hustling and moving. Yeah. Okay, so on those days, you definitely want to eat before but, but you're saying you need to make a good Bolus for that meal to stop a spike. Yeah, yeah. Are there things that you prefer to eat before you dance,

Caitlin 11:41
I usually will try to eat, have a protein, a carb, and, like, a vegetable or fruit. I found that those work really well if I just have, like, a healthier meal. I guess,

Scott Benner 11:49
awesome. How does it feel for someone to tell you that your personality isn't the same when it's not a thing you're doing on purpose?

Caitlin 11:56
Personally, I'm not, like, hurt by it or anything like I understand, and I'm like, okay, so I need to figure out a way to kind of shift, because I don't like being mean to people. That's one thing. And I don't know if I feel like I've upset somebody. I feel really bad, and I will hold on to that for so many like, I'll hold on to that for a while, and I'll feel really bad. So if somebody was like, I can kind of tell when I'm shifted a little, and then I just will figure out a way

Scott Benner 12:21
to fix it. What does it feel like internally? Like, how can you tell I mean,

Caitlin 12:26
I will, like, there are certain things that I'll say, and I will say it, and then I'll go, that was really out of character for me. I don't know why. I just said

Scott Benner 12:32
that, okay. And then that makes you feel like my blood sugar must be high,

Caitlin 12:36
yeah? And sometimes I'll look and I'm like, okay, so it's a little higher up. Maybe that's why, because I usually, I don't get aggravated at people that often. I'm a very difficult person to make mad. I guess. Interesting,

Scott Benner 12:48
is it discouraging or upsetting that there's a shift in your personality that has nothing to do with you? Like, if you didn't have diabetes, this wouldn't be happening. You know, I'm saying, like, if you're on the dance team, and I run up to you, and I What's that was, remember that girl that there's no way you remember this the ice skater with a pipe so she couldn't skate in the Olympics? Oh, yes, I've, yeah, I've heard that story. I come up and I pipe you Okay, and now you can't dance. That's not your fault. You're frustrated by that. Now I'm not dancing because something outside of my control unfairly, you know, crippled me. And so if your blood sugar goes up, is that not the same thing? Like, didn't something outside of your control change your ability to do something? I mean, kind of you're so young, I'm making you think way too hard about this. I'm sorry. I just like, I don't, I don't think I've ever thought of it like, No, I know. That's why I was asking the question. Don't worry, later, we'll, uh, bitch about your brother a little bit. I can't wait to find out about cam.

Caitlin 13:48
There's, it's really not that much. I'll say that there's not much

Scott Benner 13:51
Cam's a big nothing. Is that what you're here to say this time? No,

Caitlin 13:55
he just he's 13, so he's at that age where he'll mind his own business and all mine, mine we don't really like. He doesn't aggravate me that often, because he's usually just in his own little bubble, and I'm in mine. I guess.

Scott Benner 14:09
How many other brothers and sisters? Any? It's just him, just him, just him. Oh, your parents just made that one mistake of having one more kid. No, you like him? Yeah,

Caitlin 14:18
obviously I'm gonna love him because he's my brother. But it's just I kind of nice that he doesn't aggravate me as often as growing

Scott Benner 14:26
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Caitlin 17:00
My mom is very involved. She will always help me with, like, both my parents drive me to if I have, like, a an appointment with my Endo, they'll drive me there. But my mom helps out a lot, especially with dance, because a lot of the people at the studio, they don't know, or, like, they don't know how to work it, like, control it, or anything. Like, if I have a low blood sugar, they don't really know what to do. So my mom always will tell them, like, this is what needs to happen, and if this happens, call me. Or if this happens, just like, there's stuff there, she's very helpful with it.

Scott Benner 17:34
Awesome. Your dad less so or on the same level as your mom,

Caitlin 17:39
I'd say they're on the same level, just my mom, I My mom also, she works from home. So if something happens, my mom is always like the first one I can text to answer, because my dad, he he works, he's an owner of a business, so he's always like, on the run, or he's on the phone calling somebody. So I'll usually go to my mom first,

Scott Benner 17:58
yeah. If you contact your dad, he's gonna say, was mom not home?

Caitlin 18:01
Yeah. Or if I text mom, she'll go, like, if she's busy, she'll be like, just call like, whoa, text dad or something.

Scott Benner 18:08
Okay, so that's good. So they both have like, kind of an equal value for you on this. Yeah, awesome. Is that

Caitlin 18:13
comforting? Yes, I like, I don't know what I would do without them. I guess especially at such a young age,

Scott Benner 18:19
are there times when that's really evident to you, like something goes wrong, and have you ever thought like, Oh, my God, thank God, these people are here?

Caitlin 18:28
Yeah, I had a an incident. I think I was in seventh grade. Yes, seventh grade. It was towards the beginning of my seventh grade year, and I had a really bad low happen, and I was on the bus on the way home, and my blood sugar dropped, and it was like 30, and it was still dropping, and I was giving myself sugar, and nothing was working, and I couldn't move my left arm like it went weak. I couldn't lift it up. And I had my friend take my phone and call my mom. I was like, I need you to call. I was crying, actually, because I was like, I don't know what I'm doing. I thought I was going to pass out. I got tunnel vision. I was like, Can you call my mom and like, have her do something, because I it was out of my control at that point because I couldn't move. Yeah, and my mom was like, talking to the bus driver, and was like, You need to pull the bus over, and then they called my dad, and my dad, thankfully, he works close to where I live, and we were almost to my bus stop, so he sped over really quickly and got me, like, all fixed up and everything.

Scott Benner 19:32
No kidding. Now, are you famous after that on your bus? Or are people, everybody

Caitlin 19:36
kind of forgot about it, I guess, because nobody said anything the next day. And I was really, like, nervous. I was ready for somebody to say something, and I was like, I don't want to talk about it or hear it. I just remember when I got home, I thought about it in my head. I'm like, people are going to talk about this, and I'm going to be really embarrassed, and I'm just gonna have to pretend like it didn't affect me. But it, for sure, did. Yeah, people were cool. I guess. And they just, like, saw that the bus was pulled over, and I was just and, like, I was getting walked off by my dad, and that was really

Scott Benner 20:07
it. Generally speaking, how are kids with the diabetes? Do they mention it? They bother you about it? Are they supportive? What's your findings

Caitlin 20:16
it? It really depends on how I know them, like, how well I know them. Because when I was younger and I first got diagnosed, my class was very understanding. I was I had the same group of kids kindergarten all the way through fifth grade, so they knew me very well. And when they heard that I was diabetic, my teacher kind of gave them like a rundown of what it is. And like, you know, this is how this is going to work now. And they, honestly, they were very supportive. They helped me, especially my really close friends. They helped me out a lot. And then once I got to, like, middle school, there was a couple of kids who I had to meet because it's a new school, and it went from just being the same group of kids to seven different groups of kids, and some kids didn't understand it, I guess, right? They didn't have background to them, yeah? And they would, they would crack jokes here and there. But my friends, they were like, you can't say that. Like, that's not something you need to

Scott Benner 21:10
say, right? Just, like, dumb, thoughtless, like, sugar jokes and stuff like that,

Caitlin 21:14
yeah. And then they also confused type two with type

Scott Benner 21:18
one. Oh. They thought you did something to give yourself diabetes, yeah, okay.

Caitlin 21:22
And then my friends would be like, No, you don't know the difference. Like, that's why you can't say that. If you don't know what it is, why are you saying it? Yeah. And then once I got to high school, they didn't like, I don't hear anything about it,

Scott Benner 21:32
yeah. Did that make you feel any sort of way when they misunderstood?

Caitlin 21:35
Yeah? Because I was like, why are you saying stuff? But you don't know what it's like. You don't know what it is because I like, I won't say anything if I don't know what it

Scott Benner 21:46
is, kind of frustrating then that they didn't understand, but they felt comfortable talking about it, yeah, okay, but never hurtful. Like you didn't feel like it didn't feel personal.

Caitlin 21:57
It kind of did, but I was really good at I guess, hiding it, I don't

Scott Benner 22:01
know. Is that a thing you've ever thought about since then? Like it present day? Is that a thing that bothers you? Or no,

Caitlin 22:07
no, because I don't hear much about it. And if any kid when I was younger did something like, my friends would pull them aside and be like, you can't say that, and then they would apologize. So it was always it was always good after that,

Scott Benner 22:18
just a core of badasses with bats, like holding kids in corners and lockers, telling them, Hey, don't talk about Caitlin like that. Or was it done

Caitlin 22:25
more they would, they would just come up to them and be like, you can't say that. Like, that's not something you should say about people, because what if that

Scott Benner 22:31
was you? Oh, so, just good old fashioned reverse peer pressure. Then kind of, yeah, hey, listen, whatever works. Do you date? Is that a weird question?

Caitlin 22:39
No, I don't, do you

Scott Benner 22:41
think about it sometimes, I guess just I don't know what is dating look like when you're 16? I'm gonna sound very old for a second. Caitlin, so don't laugh at me. But like, you go to a movie, you go out and get, like, like a drink, to get like a soda, or go to a diner or something like that. Like, what do they do?

Caitlin 22:59
Well, one of my friends, her and her boyfriend, they go on like, little kind of, like lunch dates, especially because it's summer right now and they also play the same sport, so they'll usually drive to practices together. They're both very supportive with each other, which I like, I love to see that, yeah, and, I mean, yeah, I guess, like movies too, work, I know a bunch of like, lunch dinner dates usually happen, or even breakfast sometimes, but

Scott Benner 23:22
that's not something you're interested in right now.

Caitlin 23:25
I mean, like, if the opportunity came, maybe just where I'm at right now, I'm okay by myself, because I'm, you know, I'm not yearning for it. I guess I

Scott Benner 23:35
just, I understand, but if the right boy showed up, you'd maybe talk differently about this. Yeah, I got you. When I say that, is there a boy? You imagine, like, is there a real person?

Caitlin 23:45
No, if, if there was the right person, I guess, or if I felt like it was right

Scott Benner 23:49
person, I'm not rushing you. I don't think you should be dating at all, by the way, yes, I don't think you should even talk to boys because they're dirty. And, yeah, yeah. But you, you know, also, I imagine dance is very there's probably not a lot of boys in your extracurricular activities, right? No, not really. So if you played soccer, you might have a soccer boyfriend, but in dance, you don't have the same opportunity,

Caitlin 24:13
no. But we all just like everybody at dance, you really don't even kind of think about it, because we're all such a close community, I guess. So we're all very supportive of each other, and that's

Scott Benner 24:22
why your mom's got you in dance. She probably loves that you're there for four hours. She's like, there's no boys here. It's perfect. Let her go there. Do you go to competitions and stuff like that, and like travel? Or is it all very local? We

Caitlin 24:37
stay within the state of Florida the furthest we've gone because I'm southwest Florida, I'm like, an hour from Tampa. Am I an hour south of Tampa? I think I'm not sure. This is a question for my parents, not

Scott Benner 24:53
me. Yeah. The compass is very confusing.

Caitlin 24:55
Yeah. And the furthest we've gone north is, or. Orlando, and then the furthest we've gone south is Fort Lauderdale.

Scott Benner 25:04
Okay, so you have travel. I mean, that's, that's a bit of traveling,

Caitlin 25:08
yeah, and then recently that, I think it was, like a week ago, they went to Texas for nationals, because we were invited, but I didn't go, because none of my dances that I was in got asked to go because it was just a matter of who can go, how many are able to get there. It was just picked only, like a quarter of the kids in my dances were able to go, so they didn't bring it.

Scott Benner 25:32
Were you disappointed, or were you happy not to have to make the trip? I mean, I wasn't

Caitlin 25:36
upset about it. It was really fun to see my friends and like my team, because we did really good at Nationals. So it was really nice to see them and to know that, like all the hard work that they all put in paid off, because they did really

Scott Benner 25:49
well. I'm flying to Texas tomorrow. I'm going on a cruise with a bunch of listeners. I actually think it's going to be awesome, but I just don't want to fly. That's I sound not excited about a thing. I'm excited about a thing I'm excited about because I'm like, I have to get on a plane and sit on a plane all day. No, it's okay. It's okay for you. I don't love it, but yeah, so I'm gonna do that. Then I get off the plane, take nappy, go to sleep, get up. Then I'm gonna get on the boat on Monday, and then I guess it's a ship, I should probably say ship. And then we'll, uh, we'll take off. We're gonna go all around Mexico for five days.

Caitlin 26:20
Oh, I've been on one cruise, and that was October 2023, did you enjoy it? Yes, it was very fun. Yeah, I was first cruise I'd ever been on. I got to miss a week of school. I was with my little cousins. So when people would ask me, they're like, oh, did you meet anybody? And I was like, no, because I was really just with my little cousins the whole time. Yeah. And I'm like their babysitter, I guess. So I was just with them, and it was really fun, though I feel like I made the best of it, but I would love to go on another one, and they were talking about it, but it might be not this year, but next year.

Scott Benner 26:53
Okay. Well, let me say two things. First of all, it sounds like your parents took you on a cruise so you could watch your cousins so they could have a vacation. The second thing is, we're going to do this again next year, in June 2026 where we're going to leave out of Miami and go all around the Virgin Islands. That's where we went. Yeah, that's what we're going to do next time. So hopefully we'll get even a bigger group. We have a big group this time, 100 people and yeah, and then next time we're Yeah, we hope it grows and more people enjoy it, so that'll be fun. It's definitely gonna be a good time. It's gonna be a nice little my wife keeps saying it's gonna be a break for you. And I was like, I don't think so. I think it's gonna be a lot of me talking to people and and everything, which is gonna be awesome. But I don't think I'm gonna come back like, relaxed and refreshed. I think I'm gonna be exhausted when I get back. Yeah, but still going to be awesome to meet people by the time this plays. You all will have heard that, uh, that it went well, because we're going to be putting pictures up on social media and stuff. Yeah. Okay, so we're not dating. We're dancing a lot. Your brother's growing up, yes, nearly the pain of the body used to be. Are you driving?

Caitlin 28:00
So I like to say that I'm I like I am, but I'm also not. My parents will say that I'm not driving. I honestly, like I want to drive. I don't have my license, but I have my permit, and I on I like I want to drive, just I don't know why I get so nervous when I

Scott Benner 28:16
do got anything to do with the diabetes or no, it's just driving. So it has a little

Caitlin 28:21
bit to do with that, because when I get nervous, my blood sugar will either go straight up or straight down, and I'm like, I just have to think of all the different like, there's so many, so many things I have to think about that my brain gets really overwhelmed. And then also I'm scared that, like, I'm gonna hit somebody, or somebody's gonna hit me, and then it's just gonna be, like, a whole thing.

Scott Benner 28:39
Let me tell you something that I hope will make you feel better. After you've been driving for a little while, you'll look back on this moment and realize driving is actually pretty easy. That's why I keep telling myself, when you stop and break it down, it feels like so much I'm driving this big thing, it could kill somebody. I could kill myself, right? I could kill the people with me. We could just crash, and it could be expensive, and even if nobody gets hurt, it's going to be a big pain in the butt, and my parents insurance is going to go up, and I'm going to get in trouble. And you know all this, right? Like, those thoughts, then you're like, you feel like you have to be aware of your own car and staying in the lane and not driving too fast or too slow and breaking on time. And there's other cars. And do I look this way or that way? When you break it down, you think about it. It's overwhelming. Once you're good at it, all of that stuff just happens automatically. Yeah, think of it like this. Did diabetes used to be more encompassing? Did you spend more time thinking about it and worrying about it than you do today? Yeah, it's the same thing. You just need experience. Yeah, that's it. So you got to go out in parking lots and places like that until you feel more comfortable checking your blood sugar. What? What I just hear, are you checking your blood sugar? Oh, no, that was my water. Oh, your water box like she's I didn't want you to be like said, you get nervous. Maybe your blood sugar gets higher or less. I thought it might be, Oh, yeah. Her, you like, check my blood sugar, Scott, I have a CGM. Thank you. And why would I be nervous making your dumb podcast?

Caitlin 30:07
It like clicks like it has, like the part where you sip out of it and then it clicks down. And I guess it was too loud. No,

Scott Benner 30:13
it wasn't too loud. I just, I just heard it. So what we did with Arden, what I did with Arden is I took her to a local like, like, a community college that's near us, so it's a big campus with a lot of roads and a lot of parking lots, and we just went in there and just drove around, like we went in on the weekends when nobody was there. And we just drove around, like, up and back and stopping and starting and making turns and everything, until, like, I saw that she really had good control of the car, right? Yeah. And then we started going in week on weeknights, when there were some cars there, and she she had her permit, right? And she would drive same thing, like, it's traffic, but it's lower speed. And then one day, I was like, Do you want to drive home? And she was like, yeah. So then she drove home on the road, and then we just build it slowly from there. Now, when she got her license to celebrate, I put her right on the highway, like Martin's first drive was 45 minutes from New Jersey to Pennsylvania on the highway. And I we got there, and I was like, Yeah, all right. She goes, yeah. And I was like, he did great. And then she's like, why'd we do that first? And I said, Well, you did that. You could do any of this other stuff. And so I gave her a bunch of confidence. I knew she could do it, right? So I gave her a bunch of confidence. And then she started driving, and she was

Caitlin 31:32
good. So I've been told something like that, except it's with a truck. Yeah, my because my dad has a truck, and he's like, if you learn to drive a truck, you can honestly drive any car.

Scott Benner 31:41
I taught Arden in a very big SUV. The

Caitlin 31:44
first car I drove was my dad's truck, and that was the scariest thing ever.

Scott Benner 31:48
That's perfect. I saw Arden drive a pickup truck pretty recently, and she was effortless at

Caitlin 31:53
it. It's just, it's a big truck. My dad's truck is really big, and my dad is really tall and like, so I'm like, I guess for average, I'm like, average height for a woman. But in my family, my family is very tall on both sides, like my mom and dad, they're both very tall, so I'm considered short to them. Okay, so having

Scott Benner 32:15
five, five by fours, how tall are you? Like, 5554, I'm 555, okay, and then, and so you're in this car that's set up for a giant person.

Caitlin 32:24
Yes, yeah, because my dad is 640 so it's like, I'm in a very so it's all of our family, like, our whole family has massive cars. And I'm like, I cannot drive these because the first time I drove my dad's truck, I was driving around my neighborhood, and then he told me to go parked in the driveway and I almost hit the garage door.

Scott Benner 32:43
Is that, because how big the car is, could you not judge the front of the truck? Maybe

Caitlin 32:46
I couldn't. I could not judge it. I was like, leaning forward. I'm trying to, like, lean up and over, trying to see how close I am. And then I accidentally hit the gas instead of the brake. I was just, I was like, what happened?

Scott Benner 33:01
My wife drove through her parents garage door when she was learning to drive. Like, drove through it like, was in the garage with the door all over the car. Oh, no, yeah, that crazy.

Caitlin 33:14
My aunt, when she first learned to drive, she she was good. The day she got her permit, she was doing really good. And then she almost, I don't know if she almost hit the garage door, or if she did hit the garage door, and then I think she did, and it was like a tiny little bump. And then my grandpa took her on the interstate. That's like, literally that same day, not even five minutes later, he's like, Okay, let's go on the

Scott Benner 33:36
interstate. My mom never drove. She couldn't do it her whole life. She never drove a car. I tried to teach her when I was 16, because I was like, This is so easy, like she'll be but she was bad at it. And I, after she did it, I was like, You know what? Maybe they're right. I don't think this is for you, but trust me, whether it's a big pickup truck or a little tiny car anywhere in between, it's just once you have that feel and that vibe, you can run it like, it'll it'll be okay. You'll just get in, you'll go, you'll never think of it. You won't be, like, looking forward, trying to see over the hood, like, it doesn't work that way. I see some of you people out there driving like you're two centimeters from the steering wheel, like, trying to look through the windshield. Like, sit back, relax. Get a vibe. Like it's how it works good. Just gotta get a vibe for how it all works. And then you'll you'll be okay. You're a dancer, right? Yes, you're athletic. You have good control your body, right? Your body ends up where you mean for it to be when you're doing stuff. It's the same thing. It's the car. The car is just an extension of you through your hands.

Caitlin 34:33
What's also, I guess I'll say, really nice about being a dancer, is my reflexes are really well. So I didn't hit the garage door because had I had not had good reflexes, I would have hit the garage

Scott Benner 34:42
door right? You touch the accelerator, and then you break the time to stop yourself.

Caitlin 34:46
Yeah? That was like. I was like, Thank gosh, I have good reflexes. Because had I had not I would have went right through the cross.

Scott Benner 34:53
Yeah? Well, we don't want that, but, yeah, just get out there and practice more. You'll feel good about it.

Caitlin 34:58
That's what I'm hoping. To do? I want to get my license in July. I hope right or either, like, July or right before the school. School year starts in August. Why do you want it this summer? In July? Like, I want to just be able to drive to school and not have to go on the bus. Yeah, I loved it as a kid. I was like, Oh my gosh, I get to go on a bus in the morning. And then as I got older, I'm like, I have to wake up really early, because our school starts at 710 in the morning. Like, that's when first period starts. And my bus would pick me up at 610 so I would have to be up at five in the morning every morning. And I was like, this is such a pain, and I wouldn't be home till nine o'clock at night because of practice. So I would literally be up for well over 12 hours, and I would like towards eight o'clock. I'm like, I'm done. I need to go home and go to sleep.

Scott Benner 35:48
Yeah, exhaust. Yeah. Gosh, I if I had to get up at five o'clock to go I mean, I guess I did at some points, but if I had to do that now, I mean, if I had to get up at five o'clock to make this podcast, you guys wouldn't have this podcast. I'm sorry I can't accomplish that. That's way too early in the morning if I go to dentist to get my teeth cleaned, and I have, like, my first big I'm the first appointment of the day, you know? And I walk in there and I'm like, the time you guys get here, and the person up front tells me, and I'm like, oh my god, what time just to leave your house? And then she tells me, and I'm like, Have you ever considered quitting? I was like, this horrible, you know, like, she's like, driving for 40 minutes to get somewhere, and I'm like, oh gosh, terrible.

Caitlin 36:29
The only perk, I guess I'd say, of waking up early is I'm not an like, I'm an early bird. Now, I used to be able to stay up so late at night, I can't even make it past, like, 930 without actually falling asleep, and I can wake up at like, six o'clock and be fine

Scott Benner 36:45
when I just turn to an old person at some point, like, I don't know,

Caitlin 36:49
it's just I cannot stay up late. And my friend, she's a grade younger than me, so she'll be a sophomore, and she can stay up really late. And I'm like, How can you stay up late? We wake up at the same time. Yeah. Do you drink any caffeine or No, I do, and it's probably really bad, but I do. Are

Scott Benner 37:04
you using that to help yourself? I mean,

Caitlin 37:07
I guess kind of, it kind of helps. I just, I can't tell if it will help or not. Is

Scott Benner 37:12
it coffee or soda? It's usually coffee, but,

Caitlin 37:16
like, because it's i to me, I don't know if it's like a mental thing, like, Oh, if I drink coffee, I'm gonna feel awake or like, it actually

Scott Benner 37:24
works? Well, no, I think it works. I think you're you're probably addicted to coffee. How long have you been drinking coffee?

Caitlin 37:30
I think, like, a year. I think it was when I started high school I started drinking coffee. I've never had a

Scott Benner 37:35
cup of coffee. Wow, yeah, I'm on a roll.

Caitlin 37:39
It'll either be coffee or if I'm at a dance competition, because we've had times where I've had to be on stage at seven in the morning, and we'd have to be at the place by six, so I would be getting ready at five in the morning. And the crazy thing about dance competitions is they can start at five o'clock in the morning and end at 12 o'clock at night that same day. Ooh, it's the truth. We've had there was one dance competition. I'm not putting them on blast, though, but this one was always so rough for us, so that's why we did it. Our first competition was that one, because it was like the one thing we just get over with. We would have to do convention classes where you learn from dance teachers, and they give you like combo to learn and whatever for an hour. And you would do that from, I think it was like seven in the morning to one or two o'clock in the afternoon, and then immediately go on stage and compete at three o'clock. And awards wouldn't be done till like 1230 in the morning. Is that

Scott Benner 38:40
a money thing? What do they have a bunch of teams there, and they charge them to be there? Yeah, they're trying to make money. Yeah, no. I mean, this is my son play baseball, you know, the way you dance, and you'd go to tournaments sometimes, and the weather would get absolutely just unplayable. And you'd be like, cancel this. And they'd push it back. And they'd be like, No, I'm not canceling it because we're not giving your money back. I probably have said this on here before, and I don't remember even how old he was at this point, but probably, like, 15. I remember watching Cole play center field and pitch in a driving snow storm. Oh my gosh, one of those fall, like, early fall tournaments, and it just it got cold here fast, like, he pitched two innings, and then he came over to me at the fence, and he's like, I can't, I can't hold the ball anymore. I was, I'm like, you gotta go tell the coach. He's like, my hands like, frozen. I can't, like, Oh no, I can't get the grip on the ball. So they just kept using, you know, they got away from the starting pitchers, and then they just started anybody who could, like, hold the ball for a second to throw it. They asked the people, like, what? Cancel this? Yeah, it was before everyone had great cameras on their phones. So I probably don't have a picture of it somewhere, but I remember taking a photo of it when it was happening and like, you could almost not see him on the phone. Oh, wow, it's crazy. I've also seen them play in Georgia. I think it rained all day during a tour. Remember, they still try to jam games in at night, so they drug them back to the field to play like a 9pm game because the rain had stopped, but the rain stopped, then the weather shifted again, and then the fog rolled in. Oh gosh, and they actually played in a game where the kid in right field described that a fly ball landed three feet in front of him on the ground, and he never had any context for where it was. Oh my gosh. He heard the ball get hit, and then he said, I just stood there, and then the next thing I know, it fell right in front of me. And then it's even

Caitlin 40:37
worse, because people will be yelling at you because they can see it, and they're like, it's right in front of you. And you're just like, I can't just like, I don't see anything.

Scott Benner 40:44
That was the moment they actually finally canceled the game because I think people are like, Oh, I guess I could have hit him in the head. Yeah. Then we got adults to think a little bit, but they played the game long enough that they didn't have to what Caitlin refund our money? Oh, no, we played four innings. That's enough. It's all about money. Everything's money and power. Yeah, remember that as you get older? Okay, it's, you're too young for that, but people are motivated by money and power mostly. Anyway, that's not for today's conversation. That's, I don't, I don't want to scare you. You're still learning how to drive. So what made you want to come back and do this again?

Caitlin 41:16
I mean, I guess, like a catch up, because I'm, I don't see, I honestly don't remember how old I was, but it's been a while. Yeah, been a long while. Yes.

Scott Benner 41:24
I mean, it's been years since you and I talked, yeah, well, I appreciate you catching up with me, and I appreciate you sharing how things are going. You've come this far. Where do you think things are going to like, how do you see, for example, do you think you're going to college? And what are your plans around that? With diabetes.

Caitlin 41:41
I hope to go to college. Like, I really, like, I want to go to college. I want to be a, oh, is it like a pediatric therapist, okay, like a children therapist, I believe is that that's what pediatric means.

Scott Benner 41:55
What would you be, uh, theraporizing. I was trying to make a board and I couldn't find it. But what would you be? What would you be helping the kids with? See, I haven't thought of it that much, but that's like, Is it physical to you, or is it like speech,

Caitlin 42:07
more mental? I cannot do like physical therapy or anything like that. I just, I don't know.

Scott Benner 42:11
You can't do physical therapy. You don't, you don't think you could learn the parts of the body.

Caitlin 42:16
I struggle with human anatomy because there's so many bones that, just like, have the most random names. And I'm like, I'm like, No, I can't that's too much.

Scott Benner 42:26
I'm not remembering all that. So something where you might help kids with their their struggles that are maybe more psychological or behavioral, something like that. Okay, that's pretty cool. Do you want to dance in college? I know there's dance teams, right?

Caitlin 42:40
I want to try to, and if I can't do like a dance, like dance in college, I want to hopefully come back to my studio and help out with them, and then maybe do like guest choreography is something I love, like I like doing,

Scott Benner 42:55
so there's an age limit on the team.

Caitlin 42:58
Yeah, once you graduate, you can't, I think it's once you're 18. Okay, yeah, I think it's 18. It's ages five to 18.

Scott Benner 43:07
Okay, and so do you imagine yourself going to school in Florida or traveling to another state?

Caitlin 43:14
I'm hoping to go to stay in Florida. I want to stay in state, just it's really wherever it goes, I guess.

Scott Benner 43:21
Yeah, I'm sorry. What grade are you in? Right now? I'm going to be a junior. Going to be a junior after the summer. Yes, while you're a sophomore, you just finished your sophomore year. Yes, you're making me feel old. It's crazy. Do you feel old?

Caitlin 43:34
Actually? Yes. Because it hit me last week, I was looking through these yearbooks that my friend has, and they were really, really old yearbooks from when I was in, I think, like, sixth grade. And I was looking at them because their little sister had them. And I was seeing these kids who are in fifth grade at the time, and I know one of the I know a couple of them personally, and then I was doing the math in my head, and I go, Oh my gosh, they're going to be freshmen this year. Yeah. And I remember meeting them, and they were, like, six or seven years old, messes you up a little bit, right? Yeah, there was one girl in particular. I was like, I knew her since she was four years old. What do you mean? She's gonna be a freshman in high school, and then also with my little cousins as well, because my the oldest, he's gonna be in fifth grade. And then another kid that I've known, his older brother was a really good friend of mine, and he's going to be in fifth grade as well. And I've met that kid since he was a month

Scott Benner 44:27
old. Wow, wait a year. A senior, and you see those freshmen come in, you're going to be like, they're going to look like little

Caitlin 44:33
babies too. That'll be my brother. Actually, my brother will be a freshman when I'm a senior. Oh, you're

Scott Benner 44:37
going to get to go to high school with him one year. Yeah. And

Caitlin 44:41
we haven't been in the same school since I was in fifth grade. You're gonna be nice to him, yeah? I mean, I'm like, if he needs help with anything, I'm obviously gonna help him. But if he's, like, doing something stupid and he has control of it, I'm like, I like, I can't help you there. You know, it's

Scott Benner 44:56
funny. I mean, it's obvious you're 16 versus 11. When the last time I talked. You. But when I got you to, like, say bad stuff about cam, you were so, like, gleeful about it when you were little. You were like, That kid's a jerk. It was so much. I don't remember a lot about this podcast, but I remember the absolute joy that you spoke about him with when you were talking about him when you were 11. That's great.

Caitlin 45:17
He listened to it. I'll tell you that he did listen to it, and he was like, I don't care. I'd say the same thing about her too.

Scott Benner 45:22
Yeah. I mean, fair is fair, right? So are you on a good track? You think you'll be able to get into college? Your grades going? Okay,

Caitlin 45:29
yeah. I mean, like, it could all I mean, it could obviously change,

Scott Benner 45:33
but Caleb, are you gonna say can all fall apart or, well, like,

Caitlin 45:37
you never know. I mean, I'm good in school. I don't do anything bad. I usually have A's or B's in classes. It really just depends. I'm taking a lot harder classes now, now that I'm an upperclassman, so it may be a little difficult, but I usually figure out a way to, like, make it easier

Scott Benner 45:54
when you say, I don't do anything bad, and you start thinking about other people your age. What do you see kids your age? Doing that shocks you

Caitlin 46:01
like drinking or smoking, like doing substances and stuff

Scott Benner 46:06
drugs? Yeah, yeah. What's the popular drug in amongst your people in your grade? It's usually vapes. Vapes, okay? Are the big ones? Vapes with weed or vapes with tobacco? Or not tobacco?

Caitlin 46:19
It's, I think it's weed. Okay? I'm I believe that seems to be

Scott Benner 46:23
popular. Do you see kids doing anything harder, like cocaine or anything like that?

Caitlin 46:26
Not that I've seen personally, Thank gosh. But like, I haven't, I don't think I've ever heard of anybody at my school good ever doing that? There probably is, but I wouldn't know.

Scott Benner 46:37
What about like parties, like blackout drinking, or people getting together on the weekends and just losing their minds. Yeah, a lot of that, yeah. And why do you think you avoid that? It just

Caitlin 46:49
like, never was something that I ever thought of doing, and I know the benefit, like, not the benefits, but like, what could happen if I do start, let's say, drinking or vaping, like, I know what the consequences are. And I've never been the one to, like, want to do that. It's not something you're interested in. Yeah. Like, I don't plan on drinking when I'm older, when I turn 21 you know, maybe, like, I won't go, like, full on, like, oh my gosh, I'm gonna have a drink every day. But, like, I don't

Scott Benner 47:19
know, you might try, yeah, when you hear about kids smoking weed, for example, do you think that's not something that's for me, or do you think it's wrong? Like, do you feel judgment about what they're doing? Or do you just think To each their own, but it's not for me?

Caitlin 47:35
I guess I'd say it's like, both, because I see it and I think to myself, Oh, you know, I personally would never do that, because, like, that's not something I'd want to do. But like, if they do it, that's fine. But then I just think, like, you know, I would hope they know that this is what could happen if it gets to that certain point. Yeah, and just, like, doesn't seem something I want to go down. I don't want to go down that road. Right, right? I'm going to ask you a

Scott Benner 47:57
question. We're not going to dig into the details of it, because that's not important. It's not important. It's not important. It's not what I want to ask. I just want to know your level of like you talked earlier about how like fast things go by that like you reminded me, I'll tell you the setup for this. You talked about getting low on the bus and how people forgot about it very quickly, which made me think about how fast like, social media happens so people don't really focus on things for very long, till the next thing comes along. I didn't articulate that when you were telling the story. It was just a thought I had in my head. So I'm wondering, like, with how you guys get information and how things quickly things move. What's your level of understanding about like, the world? Do you know what's happening? For example, right now in the Middle East,

Caitlin 48:42
I hear about it, like, on the news and stuff, and then also I get like, uh, stuff from, like, in emails and stuff with, I guess, I guess I'd say the New York Times, because I have, I do, like the connections and the word all and stuff. So I get some stuff on it, because there's some people who will talk about it and talk about it and talk about it. I get that it's a problem, what's happening there, but I'm not affected by it. I'm, you know, thank God, I'm not.

Scott Benner 49:09
But it just feels like it's another place. Yeah, like, if it's

Caitlin 49:14
not, if it's affecting somebody I know personally, then that's when I will really, like, dig into it and focus on it. But if it's not affecting my circle, I guess I got

Scott Benner 49:25
you, it's good. It's gonna have to touch you personally before it would. It would be a thing you'd dig into more or feel impacted by. Yeah, I got you so you're aware of it loosely. Is that fair? Yeah, okay. And what about other things? Like, other I don't know. I don't even know what I'm saying. Like, do you know about, like, that food's more expensive right now? Or is that a thing you hear people talking about?

Caitlin 49:48
I mean, I see it a lot. I see it on the news a lot too. I mean, at like, the grocery store with eggs, especially, I saw it firsthand my dad. I think it was, I think it was with my dad. He looked at it and he was. Oh my gosh. These are, like, eight bucks. I

Scott Benner 50:01
remember holding eggs and going, like, we don't need eggs anymore. It's fine, don't worry about

Caitlin 50:05
it. Yeah, I my parents would buy the eggs and I wouldn't use them. And then my mom's like, Caitlin, you need to start using these. And I'm like, I don't want to use them, because I thought that that, like, you would have to go to the store and buy more, and then it would just add up. And she's like, No, I want you to use them. Oh,

Scott Benner 50:20
what a bizarre circle. You got caught in there. She's like, I'm buying these expensive eggs so my kids can get protein and eat and you were like, I don't want to eat these because I don't want my parents that to pay for more. And that

Caitlin 50:31
interesting. Yeah. I was like, What are you talking about? And when we went on vacation, I think every because we had four families with us, I'm pretty sure every family brought a carton, like, bought a carton of eggs and brought them, and I think we took them all home with us. So I was really confused. I was like, Mom, what are you talking about? You want me to eat these? There's four cartons of eggs in here. And she's like, I want you to eat them so they don't go bad. And I just wasted my money. And I'm like, wait, I'm gonna eat them all, and then you're gonna go to the store and buy more, and then you're wasting your money, either way. I was like, I feel really bad.

Scott Benner 51:01
Well, listen, when I grew up, my mom would buy food and then not give it to us, what? And we'd be like, Can we eat that? And she'd say no. And I'd be like, why she goes? Because I can't afford to afford to buy more of it. And I was like, well, then what do we buy it for to begin with? There was a lot of confusion around that. I think it's just a way of thinking about things. Your mom is like, this is expensive. Go use it. My mom was like, this is expensive. Don't touch it.

Caitlin 51:24
So funny. But then also, it was four carton of eggs that expired around the same time. And I don't think she would want to throw away a whole carton of eggs because they weren't

Scott Benner 51:33
having a souffle over there a big, uh, a big egg scramble or something, trying to use we did a lot of baking that week. I bet where'd you go on vacation that you came back with all those eggs. It

Caitlin 51:43
was actually where I was at when we were first supposed to record this.

Scott Benner 51:47
Oh, oh, that's right, yeah, you jumped on like, a week or two ago, and it was so noisy. I'm like, Hey, let's do this later. Yeah. What kind of setting was it like? Mountains, beach, Woods. It's called

Caitlin 51:57
weeky, watchy. It's a springs, and it's like a natural springs, and it's really nice. And we have two houses, and we have two families in each and then there's a bunch of, like, I guess, children, because every family had at least two kids. So they would split it up, girls and boys, and I was in the girls house, and thankfully they weren't in the house, so it wouldn't be as noisy, but it was a little there was a lot going on that day. I'll say,

Scott Benner 52:25
wait. Wiki, it's in Florida, right? Yes. Do you need the spelling for it? Because it felt kind of funny. Got it right here? W, E, K, I, W, A, C, H, E, E, wiki, watch now. There's a thing I didn't know existed.

Caitlin 52:41
It's very nice. It's i It's two hours and 25 minutes from where I live. But it's really nice. You drove the whole way. Yeah, I went straight from my dance recital on the 31st of May to go to there. Do you not usually

Scott Benner 52:56
drive that far? I realized when you just said that, I was like, that seems like nothing to me, but my kids went to school like across the country, so I've, don't I've taken a lot of long rides in my life.

Caitlin 53:05
I've driven further. We've driven to, well, I haven't personally driven, but we've driven to Ocean City in New Jersey and New York. We drove,

Scott Benner 53:15
that's a long drive. Yeah, yeah. No kidding. All right,

Caitlin 53:20
my brother and I were really young. I my brother, he wasn't, I guess you could say conscious, because he doesn't remember. Yeah, it's like, when you're at that age, when you're like, two or three, and you don't really remember what happened, but like, you've been told I remember it. I was six when I went but we were really young, and I don't think my parents wanted to put us on a

Scott Benner 53:38
plane. Think this might be a state park, yeah, is it?

Caitlin 53:42
Yeah, it's like a state park. And then there's a, there's a place called Rogers park that meets at the end of it, and there's, like, houses that you can rent out, or, like, Airbnb is, I guess they're really nice,

Scott Benner 53:56
incredibly clear water, I'll tell you that much.

Caitlin 53:59
Yeah, it's very like you could literally be standing above a six foot, I guess, dip, and you could see straight down. Wow, it's very nice. There's

Scott Benner 54:09
a Hardee's and a Winn Dixie right out on the highway. So if you get hungry, you can head over. Yeah,

Caitlin 54:12
that's where we usually shop. I think that's where all the eggs came from. Was when Dixie, Winn Dixie eggs? Yeah, I believe that's where they came

Scott Benner 54:19
from. Is there anything that we haven't talked about, that you wanted to talk about? Any about, any topics I missed or ideas that I skipped over? No, not really. That's it. So now we're down to Cam, okay, he's not a problem anymore. You're saying

Caitlin 54:32
no, no, he is so much like it's just the whole like he minds his own business. I mind mine.

Scott Benner 54:39
Do you feel like this is just him being more mature, or both of you,

Caitlin 54:42
I'd say both of us, because we used to like nag at each other when we were younger, because, you know, we're siblings, we're little, yeah, and, you know, you just kind of like joke around with each other, and then it kind of gets into more and I've seen it firsthand with my cousins, except it's a little different. Because they're both boys, but they have the same age gap that we do, so and they're 10 and seven, so it's like, that kind of dynamic that my brother and I had, except I'm seeing it firsthand for myself, yeah, and they'll, like, play around with each other, and then they'll nag at each other, and then I'm like, Okay, this is exactly like how Cameron and I were. I see it now I can see how much of a pain this was to my parents.

Scott Benner 55:25
You feel a little bad about it. Maybe, yeah, I'm

Caitlin 55:27
like, maybe I shouldn't have gotten so mad at him so easily. Or maybe I shouldn't have told him that he was stupid or something I don't

Scott Benner 55:35
know. In fairness, you were really young. Yeah, it was funny. I was asking you because it was funny, because I knew you were gonna say, like, goofy stuff about him. But it is interesting. Is interesting to see how your opinion of him has changed, you know, over time. It's really awesome.

Caitlin 55:47
He especially changed. He like, we're, I guess I'd say total opposites, because I am very extroverted, like, I will love to go and talk to people and go around and like, you know, meet people. I love talking, so that's why I love doing podcasts. Like I love doing this, because I just talk and talk and talk. But Cameron, he I could maybe, like a little bit of an extroverted introvert, I guess, because he would prefer to stay home and be with himself than go out and do something, I guess.

Scott Benner 56:17
But he's loud when he's being himself. Yeah, he'll play, he'll play,

Caitlin 56:21
like, Fortnite with his friends, and he's really loud. But thankfully, like, I told him, I was like, Cameron, you cannot be doing this because I am recording this and you'll hear it in the

Scott Benner 56:29
background. Oh, right now, you told him he's gonna calm down. Stop yelling. Yeah, he's holding it together for the time being. See, even that's a better, it's an upgrade. You have nothing to complain. You can't even complain about cam at all. No, okay, well, I mean, that's good, don't you think?

Caitlin 56:49
I mean, we haven't had any problems. I guess he's just at that kind of like, moody teenager age, especially when they start. He just turned 13 in March. So I'll like, tell him. I'll be like, hey, Cameron, because Cameron and I, we flip taking the dishes out of the dishwasher and putting them away. So whenever it's his, like, day to do it. I'm like, Cameron, can you, you know, are you able to do the dishes out of the dishwasher? And he's like, Okay, I'll do it. And then it'll be like, an hour later, and my mom's like, did he take them out? And I'm like, no. She's like, Okay, go tell him. And I tell him. And he's like, Okay, I'll do it. And then he just won't. And then he'll get upset and be like, Okay, fine, I'm doing it.

Scott Benner 57:28
Oh, see, I guess we're done. Cam has learned his lesson. He's going to be fine, by the way. This is all going to pivot again. You're going to get older. He's going to get older. It'll change again. You'll find a way to argue one more

Caitlin 57:38
time. It's kind of crazy. I'm a very like, I guess nostalgia hits me really hard. I guess I could say so when he turned 13, I was like, wow, he's 13. I couldn't believe it, because every time I see him, he's still like a five year old to me, yeah, and I couldn't believe that he was 13. And I was like, I feel like my parents right now, like, this is, must have been what they felt like when I turned 13, except it's their child. But I was like, Cameron is 13, and then my friend's younger brother, they're like, my brother and her brother are best friends. And he turned 13, like a month or like two months later. And I was like, Oh my gosh. Everybody is just growing up. And then also my cousins, you know him the oldest being 10. And I was like, wow, everybody's like, growing up. And there's some times where I'm like, I wish I could just stop growing up and be a five year old again, but, I mean, you can't do that. But just I remember the day Cameron, turning 13. I was like, I felt really old. I was like, why is this happening? He's supposed to be seven. I

Scott Benner 58:39
hear you. I some when it doesn't really happen to me much anymore, but there was a few years ago, look at my son, and he was so much older, but I couldn't think of him being that old. He still felt younger to me in my mind. I mean, it's different now, but, like, it was weird. I'd look at him and I just wouldn't see him the way he was, like, for a while. Yeah. So hear what you're saying. It would be nice to stay five forever. So get a little I wish Little Peter Pan going maybe 16 year olds, you've never seen Peter Pan, have you?

Caitlin 59:07
Yes, I have. I used to, actually, I used to fall asleep to that movie. That's what used to put me to bed when I was younger. Really, we had a it was a very, very tiny, tiny TV, like the screen was really small, and it used to be in my bedroom, and this is in my childhood house, and we had the DVDs, and my dad would put on Peter Pan because I guess that's the only thing I could fall asleep to, is

Scott Benner 59:30
Peter Pan. Oh, that's nice. So do you I'm gonna ask you one last question. Do you have, and if you don't, like, Don't feel pressured just to say anything. But do you have any, I don't know, like, advice or thoughts you'd want to share with other kids your age who are living with type one, anything that you find very, very helpful.

Caitlin 59:46
I mean, I guess if you just recently get diagnosed, it's gonna seem like a whirlwind, like your whole life just flipped upside down, because that's how I felt when it first happened. I was like, Okay, I am not the same person I was. You know, a week ago, after I got diagnosed, just know that you'll be fine, like, everything's going to be okay. And I know that's so, like, so cliche to say, but it's the truth. You're going to be okay. It honestly gets so much easier. And just if you know, be grateful that you have people there to support you, like family members, because they're going to be, like, your lifeline? I remember I literally would be terrified to go to school because I was like, how am I supposed to do this by myself, without my mom? And thankfully, like I had teachers and friends who were very, very supportive and helped through everything. So always, just be grateful that you have somebody, and I get your parents or somebody might nag you and be like, Hey, can you do this? Can you do that? It's gonna get very annoying, but just know that they're doing it to help you and to keep you alive. Because without them, like, if I didn't have my mom or my dad or any, really anybody, when I was younger, if it was just me when I first got diagnosed, I would be so lost. Yeah, it was, like my whole life basically flipped upside down, but they flipped with me. Think of

Scott Benner 1:00:59
it this way. Caitlin, you came on here when you were 11 years old, and you spoke about your brother the way you spoke about him. And now you're here five years later, and you're speaking about him completely different way. So I think maybe the messaging might be is that if somebody's annoying you right now, who's trying to help you, you might feel differently about it in the future, right? So even if your parents are bugging you, like there will be a day that you'll look back and think, Oh, I'm so glad they did that. Yeah, yeah, it's much better to have people who love you, who are involved with your life than the opposite. Yeah, I think that's a good message. I appreciate that. Thank you very much. Please tell your mom. I said, Hello, tell cam. It's sorry we couldn't complain about him. He turned into, I'll be like,

Caitlin 1:01:43
when the episode comes out, you'll be shocked at how completely different it is compared to the first

Scott Benner 1:01:47
one. You were kind to him. He was like, Huh? Things really have changed. Yeah. And good luck getting your driver's license and feeling more comfortable driving. I think you're going to be terrific. Just like I said, just, it's a vibe, like you just gotta go do it somewhere, till you get a feel for the vehicle.

Caitlin 1:02:01
It's just honestly a mental thing with me, because I have been told from people that I'm a really good driver, because I'm very aware. I think it's just me mentally being like, this is what's going to happen, and this is how it's going to go. And I make like, a whole play by play in my head, and it's really not what happens. I just need to get over that. Have

Scott Benner 1:02:18
you driven fast yet? Like, have you been over 60 miles an hour? No, yeah, that's another leap. That's a step. Once you can drive quicker, bring that so for my daughter, what we did was in a big like, a big empty space, once she seemed comfortable with the car, I was like, okay, like, let's go over to this side here. I'm not a trained driver instructor, okay, I have taught two people to drive. So I took both of them into a really, like, open area, paved, obviously, and put them on one side of it. And I was like, okay, like we're in the middle. There's nobody here. There's nothing to hit. Just go drive as fast as you can in a straight line. Just like, stop on it, and I'll tell you when to stop. And so we did that over and over again a couple of times until they realized, like, okay, even when it's going faster, like, this is how I control it, because it's not a thing you want to learn the first time on the highway. You know what I mean, yeah. So we would do that over and over again till, like, that didn't seem I just, I think I was just removing their fears as we were going along, yeah, breaking from a high speed you know about getting up to speed quickly, like giving them the whole vibe. But anyway, my last I have one last driving question for you, yeah, are you very dependent on cat, like your vehicles have cameras in them, or are you very mirror oriented? What do you use when you're backing up and changing lanes and stuff?

Caitlin 1:03:38
I mean, I guess I could say both. It really just depends on the situation. Because if I'm backing up, my mom is telling me, like, you cannot use your backup mirrors when you have to back up or something. But when I'm driving, I'm always looking out of my rear view or my side mirrors every time, because I just like to be aware of what everyone's

Scott Benner 1:03:56
doing. Yeah, my kids are so adept at using cameras over mirrors, yeah, and it took me a lot longer to be comfortable with that, and I just think it's, it's what they grew up with that they were more accustomed to, and what I grew up with was mirrors. So

Caitlin 1:04:11
yeah, I personally like the mirrors better. I guess just when I have to back out, it can get a little tricky, having to, you know, turn around and look over and kind of see because, you know, me being the height I am in a really massive vehicle, it's, like, really difficult for me to see, and then I'm like, I'm gonna hit that car. And there's really, like, six feet in between me and the other car.

Scott Benner 1:04:36
Yeah, I know my girl. Listen, my grandmother used to have a tennis ball hanging from a string in her garage, and she'd pull forward until she bumped into the tennis ball and she stopped. And

Caitlin 1:04:43
I might need that actually, that might help me a lot. We're a car with a camera

Scott Benner 1:04:47
in the front where you can just look and go, Okay, I'll stop now, so we'll see. All right, Caitlin, you were terrific. I really do appreciate you doing this. Thank you very, very much. Thank you so much. Oh, I'm glad you had a good time. Hold on one second. You.

US. Med sponsored this episode of The Juicebox podcast. Check them out at us. Med, Comm, slash Juicebox, or by calling 888-721-1514, get your free benefits. Check and get started today with us. Med head now to tandem diabetes.com/juicebox and check out today's sponsor tandem diabetes care. I think you're going to find exactly what you're looking for at that link, including a way to sign up and get started with the tandem Moby system. I can't thank you enough for listening. Please make sure you're subscribed or following in your audio app. I'll be back tomorrow with another episode of The Juicebox podcast. I created the diabetes variables series because I know that in type one diabetes management, the little things aren't that little, and they really add up in this series, we'll break down everyday factors like stress, sleep, exercise and those other variables that impact your day more than you might think. Jenny Smith and I are going to get straight to the point with practical advice that you can trust. So check out the diabetes variable series in your podcast player or@juiceboxpodcast.com I am here to tell you about juice cruise, 2026 we will be departing from Miami on June 21 2026 for a seven night trip going to the Caribbean. That's right, we're going to leave Miami and then stop at Coco k in the Bahamas. After that, it's on to st, Kitts, St Thomas and a beautiful cruise through the Virgin Islands. The first juice Cruise was awesome. The second one's going to be bigger, better and bolder. This is your opportunity to relax while making lifelong friends who have type one diabetes. Expand your community and your knowledge on juice cruise 2026 learn more right now at Juicebox podcast.com/juice, cruise. At that link, you'll also find photographs from the first cruise. The episode you just heard was professionally edited by wrong way recording, wrong way, recording.com

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