#357 Just Smile and Wave
Scott Benner
Owning change in type 1 diabetes
Katie is a mother of four who is on the show to talk about how she took control of her daughters switch from MDI to pumping. I love her attitude about type 1 diabetes!
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello everybody. This episode of The Juicebox Podcast is sponsored by Omni pod and Dexcom Dexcom. Of course makers of the G six continuous glucose monitor and Omni pod makes a tubeless insulin pump that I think is second to none. If you'd like to try a free, no obligation demo of the Omni pod, you can do that today, very simply by going to my Omni pod.com forward slash juice box. If you want to learn more about the Dexcom g six continuous glucose monitor dexcom.com forward slash juice box.
You're listening to Episode 357 of the Juicebox Podcast it's going to be called smile and wave. In this episode, I'll be speaking with Katie. She's got like 400 kids or something like that. And one of them has type one diabetes. Katie came on today to talk about what it was like to go from MDI, to a pump. And some of the things that she experienced along the way. This episode becomes very Guinea. I very much like Katie and I and I like chatting with her. Turns out that I've spoken to her before and really didn't remember before we recorded this, so that was a little embarrassing. As you're listening, if you'll do me the favor of remembering that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise. And please, of course, always consult a physician before making any changes to your health care plan or becoming bold with insulin. I would appreciate that if you you know, would remember that. Alright, let's jump right in. Katie is really delightful. I quite enjoyed talking to her.
Katie 2:11
My name is Katie and I have four children and they are 14 1311. And then four, and she is our type one. The four year old, the four year old. Now when you thought to come
Scott Benner 2:25
on and be like right away, I'm gonna get made fun of for having four kids. That was it. Yeah, yeah. Yeah. And that's why I'm not gonna do it. Because it seems like that's the way I would go. And but but my God, let me just ask this then. All with the same Dad.
Unknown Speaker 2:42
Yes. All with the same dad. So then the four
Scott Benner 2:44
year old was a I don't like to say this where it's gonna be recorded. But after a dinner with a couple of drinks on a Friday night, something like that kind of a situation. I guess
Katie 2:54
we had we have the older three that are very close in age. And then somewhere in the in between the left the 11 year old and the four year old almost five. We did have two foster children that we had for a little while and then they were placed with an aunt and so that middle area was filled with six other kids. And now
Scott Benner 3:16
you get somebody back on your team because I guess the other three are gonna overpower you. But you have are the older three or do you have four girls?
Katie 3:25
No. The second one is a boy but yes, three girls one boy. Oh,
Scott Benner 3:29
yeah, that's good. Yeah, terrible. Um, so yeah, I hope that doesn't sound sexist at all. But that's gonna be horrible.
Unknown Speaker 3:37
Yeah, again. Oh, sure.
Scott Benner 3:39
Oh, sure. Oh, geez. For like, probably I'm guessing a span of like, Where's it start right around? 13 it Where does it start? Where do ya where they start coming at you like demons around 13? Probably doesn't really until he got to think maybe ready every school college and then they probably picked up again in their early 20s. And then in their late 30s. And yeah,
Katie 4:04
it's gonna keep on coming. And the
Scott Benner 4:06
younger one was a girl too.
Katie 4:07
Yes, she's a girl.
Scott Benner 4:08
Yeah, the little people are not good at like stacking the deck in your favor. I can say
Katie 4:12
no, no. And she's a handful. So
Scott Benner 4:17
that's such a polite parenting word. Like I would love to be with you somewhere quietly privately where I said you tell me about that kid. You use a different Adjective.
Unknown Speaker 4:26
Not hateful Scott. I think she's trying to kill us.
Scott Benner 4:31
Yeah. All right. So listen. It so we're not going to just it's not that those first three children aren't important but we're going to skip right over them like they don't exist and go right to the four I'm
Katie 4:41
sure that's how they feel.
Scott Benner 4:45
So why don't we start with that right. Your when your youngest is born? How long until she was diagnosed what age
Katie 4:54
she was diagnosed at. Three like just turned three. Are you coming up on two years. We are about well, about a year and a half in a little over. Do you
Scott Benner 5:03
think? Do you think the other three? Now you had you had foster kids? So maybe this is a similar thing. I'm now in my mind equating foster children to diabetes only because it's like an extra thing to do that draws the draws attention away from other children. I guess that's the way I was thinking about it. Right. And so now, like, I'm gonna get a note from every person who's ever had a fault, they're gonna be like, they're not. And But anyway, you know what I mean? It's another thing to think about. Yeah, it takes attention away from your other kids. Do you see that with the other three? How do they feel about it is near as you can tell?
Katie 5:35
Um, I do. They don't say much. But I do think, I think especially with with our youngest of the group of three, that it, they feel a little bit of that, that we're constantly well seems constantly dealing with the younger one, and they are a little left, left out left behind.
Scott Benner 5:56
Do you think that would happen anyway? Without the diabetes, though?
Unknown Speaker 6:00
Probably. Yeah.
Scott Benner 6:01
Like, isn't that just sort of like a human? Yes. Like, I want my parents attention. I want it undivided. You know, it, nobody else counts. Even my siblings, that sort of thing. And
Katie 6:10
yeah, yeah. And this little one that came along? Yeah.
Scott Benner 6:14
Like it? Yeah, years later. And then you're just like, Oh, I didn't even think mom and dad had sex. Like, what is this? And you probably were at that age where they were probably looking at you. Like I said, nice people that bring the food into the house. Yeah. Yeah, I really do feel like that, that, you know, it's easy to point at the diabetes and say, oh, somebody is upset, because we're, we're paying more attention to that. But you know, I don't know, I never heard it too much from my son. But he would like, you know, once in a while do or say something that made you feel that way. And yet, it's possible that I have spent more weekends, like full solid weekends, 24 hours a day with my son, then most people who don't have kids who are running around playing sports like that do, right, you know, I've had a ton of personal quality time together. And yet still once in a while, it's like, oh, it's always hard. And I was like, right, how are you? out of your mind? I'm broke because of this baseball thing. Like, how could that be possible? Right? Like, yeah,
Unknown Speaker 7:11
our
Katie 7:12
our older ones play, especially our older two are real involved. We have a travel baseball for my son, and then club soccer for my oldest and it's, it's never stopped them from doing anything that yeah, that they were doing, or wanted to do. So.
Scott Benner 7:27
So I think I think the moral of the story, maybe is that kids just, you know, kind of rightfully so want the attention of their parents, right? Yeah, it doesn't really matter. What's taking it away at all feels completely criminal that it's happening. Yeah, but do you do? Is it in your mind? Do you try to not let it slide one way or the other? Or do you just do what you need to do with the diabetes?
Katie 7:48
We don't think about it. I don't. We just do what we need to do.
Scott Benner 7:53
Yeah, I feel like that's what we used to like, I think a lot of those things you spend your time worrying about and then you just look he looks super like suspect. That's a kid's word. Right suspect. Look suspect. Why do I say that? There were a lot of girls in my house last night. I must have heard that word at some point. But anyway, you look you look, you know, authentic. I think when you're trying to put attention in a place, right? You don't I mean, like everybody's got like a, an aunt or a grandparent who you know, like really doesn't like you that much. But they turn it on when they see you again. You're just like, This lady is playing the part of aunt that likes me. Why is the right a lot, a lot. A lot of 30 year olds laughing right now. I don't like my niece at all. And I do pretend to like her when I see her. Anyway, it's fine that you don't like her. She's probably nasty anyway. And those boys are dirty and they smell weird if it's a nephew, and yeah, I don't understand. Okay, so, here's why this one's gonna be fun. Katie, it's okay. It's because I don't remember why you're coming.
Unknown Speaker 8:50
I don't know.
Scott Benner 8:54
What? Why don't we look at that and see if we can figure it out. Everyone together, there must have been a good reason. Right? Okay.
Katie 9:01
I don't know.
Scott Benner 9:02
You don't know. Okay. So, at this point, I don't think it's any surprise to people that, you know, correspondence comes to me through email, through Facebook Messenger through through Instagram messenger. And I'm not great at keeping track of all of it. Right? Right. And it's easier if you email me because then I could just search you out and like, Look, but also when I when we get notes. I don't think much of it. Like I'm just like, Oh, this is cool. This person looks like they'd be good on the podcast and in and by the way, I've looked at people I thought, I don't know if they're gonna be good or not, I think Yeah, let's try and see what happens. Right? I've never turned anyone down. But I'm now seeing a note from you. Back to February of 2019. On Facebook, love the show helpful parents, new parents. Oh, maybe this was it. But I just left the windows office and I'm so frustrated and confused right now. Okay, I think this is going to be up because this happens to a lot of people. And your note was coherent. So I thought okay, so I thought, let me force this person into being on the podcast and explaining the situation. So when you sent me that note back there, do you remember that time?
Katie 10:08
Yes, I think so. Okay.
Scott Benner 10:10
Do you need me to remind you of what was happening to you back that I could do that right? You said February my, my daughter was diagnosed about nine months ago, at almost four years old. She's four and a half now. We got a dexcom, two months after diagnosis. And we've been on MDI, our last two agencies were five, three and five, one. We've used our own research, like books and the internet groups and everything, listening to all your podcasts to get from 14 and a half at diagnosis to nine A month later. 9.1 A month later, then 253 and five one after that. The question in my frustration is we recently got the Omni pod and we just walked out of the windows office to start the sailing trial. And I'm totally unsure of how I feel about it.
Katie 10:48
Ah, oh, when we started, yes,
Scott Benner 10:50
because they wanted you to set a target that was much higher than what you were accustomed to with MDI.
Katie 10:56
Right. Yes, that everything much. Yeah.
Scott Benner 11:01
And so you said, This is great. You should? Should I find a new endo or go rogue?
Katie 11:08
I don't know. I did not find a new endo.
Scott Benner 11:11
Well, I don't like naming the episodes are early on. But go rogue is a strong contender. That is what we did. Yes. Good for you. So I that is what I wanted to hear about. And here's why. In all seriousness, seriousness, not that I wasn't serious that I forgot why you were coming along. But now that I've refreshed my mind, this is a huge problem for people. You started an insulin pump. And tell me a little bit about what they what they set you up for and, and how that all went.
Katie 11:38
Um, we we were MDI for for a while, it took us a while to get we lived in Texas, and then we moved to Ohio, like, maybe three or four months after she was diagnosed. And so by the time we even got into a new endo, and, and got going with the pump, it was it was a while. And so we had figured out MDI really well, and we were getting, you know, a one c 5251 with with MDI, five, three, yeah. And so I had been so long, but I knew I knew we wanted the pump and what that would help us with so we went in and I guess we have like a CD that came in and looked at everything and started talking about how we would go about this and I just had a bad feeling that feeling Yeah. And just saying how we couldn't things we couldn't do or what we couldn't continue with or how things were not going to go it just telling us and it was kind of a Well, yes, we can like an our opinions. So we we went in for the sailing trial and she walked through all the settings and and how we were going to start and that you know be prepared she's gonna run a lot higher than you're used to giving us that that speech and we came home and like I I'm like for how long you know is a day two weeks a year? What are we just gonna run high for how long and just just really didn't set well but so that's when I you know, we did but we just listened through podcasts we read everything we could read and we went back I guess is we did sailing for like six days or something. Went back for the real influence start not at our way through the she set the the Omni pod how she wanted it. We said yes. Okay, great. And I don't think we even got to the parking lot before I took that thing and how to just did all the sessions.
Unknown Speaker 13:40
Yes, lower that higher.
Scott Benner 13:42
What was this guy thinking?
Katie 13:45
Right. And I still we change things all the time. But of course, but yeah.
Scott Benner 13:49
Okay. I apologize for a second. I have to walk down the hall and push a button on his phone. She's sleeping and I'll be right back. Okay. 45 seconds. you entertain the people anyway, you feel like it's good. Okay, do you want to sing just go nuts?
Unknown Speaker 14:02
No, no.
Scott Benner 14:06
I don't want to disappoint anybody that Katie completely chickened out and sat in total silence until I got back. That silence will give us time to talk about the dexcom g six continuous glucose monitor. My daughter has been wearing a dexcom for many generations now. And the G six is by far our favorite. No finger sticks, no calibration. It's lovely. And it gives you the information that you need to make great decisions about your insulin. What's your blood sugar? Which direction is it moving in? And how fast is it moving in that direction? Mm hmm. I know you're excited. That's crazy, right? The dexcom is at the core of how we manage our daughters type one diabetes. And I think you would find it to be incredibly impactful in your life. Some of the really exciting parts of Dexcom have to be experienced. And you can read more about them@dexcom.com forward slash juice box. But the one that I think is going to tickle your fancy is that you can share your blood sugar, or a child's blood sugar, or a friend's or assisters or a neighbor's. With up to 10 followers. You can do that with Android or iPhone. So just imagine that your friend goes on a trip to Madagascar. And you're here in wherever you live. Where do you live? Wisconsin, let's say you live in Wisconsin. And your friend says, Hey, check out my blood sugar. You know, if it gets too low, just throw me a text or call me or something like that. I'll be in Madagascar. No problem, you can do that. That crazy. So no matter where you are, at school, off on a trip down the block at a friend's house. Actually, you're going to hear Katy talk about how she handles it later with her daughter, and I love her system. So you'll you'll you'll hear more about that. Anyway. Dexcom you gotta check it out. dexcom.com forward slash juice box. It's the bee's knees. Omni pod is excited. They want to they're sitting around clamoring right now they're sitting in on the pod right now waiting for you to go to my Omni pod.com forward slash juice box. Because when you go there and you tell them hey, hi Omni pod, you'll type with your fingers. You don't really have to say any of this. You just thought a little form. But it's you know, basically, here's what you're saying. Please send me a free no obligation demo of the on the pod. So I can try it on and wear it or, you know, put it on my kid. See what they think. go for a swim with it. jog around the block, roll in the hay. I don't know what you do. But I think no matter what you're going to do, trying on the Omni pod in real life situations is going to give you a great feeling for whether or not you'd like to move forward with it as your insulin pump. My Omni pod.com forward slash juice box. Get that free, no obligation demo today. No Obligation means if you get it, you don't like it. No harm, no foul. Nobody cares. You're all good. They don't bug you afterwards. And if you want it, you just say hey, I'd love to keep going with this. I love the demo. Send me a real Omni pod. There are links at Juicebox podcast.com. And right there in your podcast player to all of the sponsors. Please support the podcast. Click on those links. We're going to get right back to Katie in just a moment really dig in and get going. But before we do, please allow me to remind you about diabetes pro tip calm. It's where all of the diabetes pro tip episodes from the podcast are housed in one place. In case you need to more simply revisit them or share them with someone else. Sometimes it's hard to tell somebody you know get your podcast app download find this episode. Diabetes pro tip.com. No es pro tip. All right, here comes Katie. My apologies. Did you recite their the preamble of the
Katie 18:11
Constitution or anything? No. But that that would have been a good idea. I didn't
Scott Benner 18:15
mean I just do that so that when I go back and edit I can amuse myself with what you did. or didn't do. Like she just sat perfectly quiet. I so Arden is there three days here of school she has off Wednesday, Thursday, Friday. The teachers call it professional development. I think they all go to like Atlantic City and drink. I'm not 100% certain
Katie 18:35
But no, we sit there and meeting. Oh, so you know
Scott Benner 18:39
these things? Because Yeah,
Katie 18:40
I was Yeah,
Scott Benner 18:42
we're a teacher. So professional development this week. And she's been she's been really tired the last week, she's like a lot of testing and things going on. So she's like, I'm gonna sleep in as much as I can. Right on. I thought I was doing a good job of holding her up. And then all of a sudden, about 10 minutes before we got on. She went from like 70 to like 66. And I was like, This is moving a little quickly. So I gave her a little juice and I tempt her way back. Because I didn't want it to. I didn't want to miss you know what I mean? Because you and right You and I were talking. So now I have like a 102 diagonal up and I got to turn all the time stuff back. Oh, so I I just had to do that. I apologize. Okay. Anyway, thank you. Okay, so you had a situation that I think most people go through and diagnosing why it happens. We can kind of all guess, you know, it's probably not that important. Like, why does your doctor do that like stone like, like, cuz this person came right out and said, Hey, listen, you're gonna be higher than you expect. wasn't just because of, you know, what you were used to your five one and your five three and all that stuff that was because they're like, I'm gonna push your settings up, but I'm not going to give you as much insulin as she needs. Right? And it's so that you can figure the whole thing out like, I think I understand that premise. But I don't understand not saying to somebody, hey, look, we're going to take this thing here, you know where you used to be at, I don't know, you were getting the equivalent of, you know, a half a unit an hour for bazel. But I'm going to knock it back down to a quarter. But in an hour or two after you get home, if she's high, why don't you move it up to like point three, five, and then wait a couple hours? And then if she still had to go to bed, and then get back to where you think you need to be it right, we'll set it here. And then you'll come back in a quarter of a year. And we'll look at it again. Right? That's exactly, absolutely senseless. And you were struck by it harshly enough that you were just like, I'm not doing that. But you have any idea how many people walk out there, into that parking lot, feel that hard that you feel and then just go along with it?
Katie 20:49
Yeah, we, we just we, I feel like we work too hard to, to get where you were and, and to just be getting something we were excited about that we wanted to that was gonna help even more and
Unknown Speaker 21:03
we just know,
Scott Benner 21:04
we just took this hill, I'm not walking back down it voluntarily.
Unknown Speaker 21:09
Right?
Scott Benner 21:10
I'm gonna stand up here with my flag and keep you off on my Hill. And it just really is. I think it's kind of it's suspect, Katie, that the doctor would do that, that they would, because did you make any noise in the room at all? Like, but we don't want to do that? Or what was that feeling? Like right there?
Katie 21:30
I did the first time. So we went in I don't know how many meetings of this before they actually give gave us a pump with insulin. But one of the first times I did kind of say no, we're why I you know, I asked why and told them we weren't going to do that. And basically, around around ended up just, again, nodding your head and saying, okay, you're right. Yes, I understand. And left and then just do what you'd want to do when you leave.
Scott Benner 21:57
Do you think that's what they want from you? Do you think they want to say, look, I told them how to be you know, quote, unquote, safe and safe right on them? Like, do you think they it has to be I cannot imagine why they would set these things. Like you said to give a kid less insulin than they're currently using. It has to just be covered there. I don't want to out where you live. But if I'm right, you're near one of the better children's hospitals in the country. Is that where you're going for your care?
Katie 22:27
No, we while we were in Houston, in Texas, we use Texas Children's when we were diagnosed, and then we moved. We're in Ohio now and we do not use a children's hospital. We just use a practice of pediatric endo practice. Yeah,
Scott Benner 22:41
I'm right about that Children's Hospital in Ohio, right? Yes, it's one of the better ones.
Yeah. Okay.
Okay. Why do you not use that versus the one you're using?
Unknown Speaker 22:51
It's just really close to our house.
Katie 22:54
We don't have to drive and park and all that so and I really like the the the end Oh, she's once we got over that she's been really really supportive since then. So cool.
Scott Benner 23:05
Yeah, well, and I think that's the next problem is that you also can't become adversarial than with them like you you don't want to start this process where you are now fighting with the end or you think of them as somebody who doesn't have your best interest at heart you really do have to kind of it's unfair, right? You have to see their side of it too.
Katie 23:22
And we you know, we smile and nod when we're there um, now we don't have to I was nervous when we went back Yeah, the first appointment after being on the pump to show her my to give her the PDM to see all this stuff we had changed. If how she would react to that, but her numbers were so good that she didn't she didn't say anything.
Scott Benner 23:43
Do you prep everybody before you go in the room? Do you have to hit him with him the Madagascar penguin thing you like just smile and wave boys? Yes like it just nod and smile. I wonder how much of life is being wasted by one person telling another person what to do when the other person has pre planned to ignore them must be so much of our waking like human hours are wasted on like oh today I'm going to explain this to a lucky young man who's going to benefit from my wisdom and and then that young man is my son who I've just told look if they tried to change your swing just go like oh yeah yeah, thank you. I can't believe I have the benefit of your beautiful and and then just walk away and you're doing it in the windows office My wife is clearly doing it around our I don't think she agrees with me about anything. She's like oh Scott, that's such a good idea. Oh, I should share that with those people on the podcast the the we were talking about I'm heading out kind of on the bits the talking you know it's talking time of year for diabetes like there's this Yeah, condense couple of months where I'll jump like from city to city and do this stuff. And and I sit around like I'd like to have something when I'm talking because people are trying to write like I wish I could bring like pads of paper with us that also made He had information at the bottom about how to like, subscribe to the podcast, like, it seems like a good idea. And then I looked into it and pads of paper were expensive. And I was like, well, I can't do that. And so we're looking through and I said, Well, here's a good idea. Like, I can get this eight and a half by 11. Like, it's from a printing company. They're incredibly inexpensive. And maybe I could set them up like worksheets for the talk, where you take notes on them and stuff like that. And I said, I think that would be a good idea. What do you think? And she says, Do you think people would take that home? And I'm like, who don't like me at all? Do you like, like you? Would I sit around like, you would never come out and hear me speak? Right? Just Oh, no, I don't think so. Having said that, she's seen me do it before and she seemed like she was unless she was just smiling. Oh, my God, Katie
Unknown Speaker 25:43
Weiland on.
Unknown Speaker 25:47
Anyway,
Scott Benner 25:49
I actually I'm kind of going over that fertile soil, because I think it is. It's an actual, it's a diabetes tool. It, it really is for your own sanity, you really do have to be able to like look through them and go, Okay, what you're saying right now does not apply to us. And so I'm gonna just, I'm gonna let you feel good about this. And then I'm going to go home, and I'm gonna I'm gonna, you know, try to diagnosis on my own because your doctor really is giving you it's boy, it's boilerplate advice, right? Because I'm looking at the rest of your note here. You said, you said they want to set our target at 150 in a range from 100 to 200. And we're not supposed to correct until 300. And I don't know if I should just send it back and forget it. Well, look at that. At that time. You were like considering not pumping? Because yes, definitely. Wow, that's something and I'm assuming that there's an endo listening right now who's Okay, that's so we can make sure you understand the pump and everything, the pump pump, what was that the pump and everything? Did my lips get stuck together. But I think that you had a perspective that most people don't come in with, like you came in with all of your research and the podcasts and all those things. You don't, you don't you didn't need somebody to dumb it down. And to push it to the other side of the safety zone. So that nothing would go wrong, I find this. I find this reminiscent of when people say to me, Hey, what's wrong with my graph? And I'm like, Oh, you don't have enough bazel. And they're, and they say, but I can't turn my insulin up. I'm always getting low. And I'm like, Yeah, but you're getting low, because your Basal is not doing its job, and you're kind of putting in too much insulin to try to overcome the food. And then it all kind of like pulls up at once and drops below, like, believe it or not, if you had more bazel you'd use less meal and so on. And right, you wouldn't get low later. But that's a weird thought leader to make, you know, because if you're getting low, why would you put in more. And that's not always the situation like everybody who like that's not just an easy fix. But it's a good example. And I wonder if this isn't the same thing. Like, people end up messing up. But it's not because of where their settings are. It's because of how they use the insulin I think.
Unknown Speaker 28:03
Right? Yeah,
Scott Benner 28:04
did you So did you have any trouble switching to a pump after you decided to do it the way you want to
Katie 28:09
know it's been great. We love it.
Alright, and see what's gone down.
Scott Benner 28:14
And everybody Katie's been on the show today. We really want to appreciate it. She's done now because she's just told the whole story in a sense, Katie, you're there's you're not storytelling here at all. You're just like, no, it's great. Thank you. I don't remember.
Katie 28:27
Well, we went we went home and and I like I said, I was in the car. We got to the car, I fixed it. I mean, we've had, we've had to go in and play with it more and more. But we've learned I think, listening to your, your podcast, all the different tricks and reading with our timing and with our bezels we've been able to really, really get things to where where we want them. So like I said, we've actually improved on our timing range, our standard TV, everything. So that's really great. It's been great. Yes, I how I don't know, it's a bunch of trial and error. how we do it.
Scott Benner 29:08
And there's nothing wrong with that. And it's funny, it's because people don't have success, because that's the exact thing that you need to do. And it's the exact thing that they tell you not to do. They're like, go home, don't touch this. Come back in March, and we'll look at it again. Right and that's the 100% the backwards, ya know, when we when we were diagnosed, and we left the hospital, I remember
Katie 29:31
getting the basic what everybody gets advice. She ran really high and we'd call in those numbers and 200 to 250 300. And they're like, Oh, it looks great. Like, no, but I feel like it is I don't think so. Right But But I remember the RCD in the hospital. She did say one of the things she she they were teaching was, you should give insulin and wait before eating food. So that Pre-Bolus idea was there, which were like, Okay, give insulin, wait 15 minutes and eat. And I want to say the first week or second week, we're out of the hospital we had gone out to eat, and I can't remember his mac and cheese or pizza or something like that, that she was going to eat. And so I gave the insulin, we waited 15 minutes, 20 minutes. And that was the first time we had a serious low because we had no idea that you can't necessarily Pre-Bolus all foods the same time.
Scott Benner 30:34
We're that that macaroni and cheese would then go in and not really impact her right away. Well, exactly. Insulin was still working so quickly.
Katie 30:41
And it I mean, we were in the car driving home, and I want to say she was low 30s, high 20s when I checked her finger, and, and I'm thinking what, you know what happened? I don't understand. They did what they said. But But that was the the turning point for us. We're like, well, we need to you gave us enough information. They I think they feel like to not kill you. But in a way, that's what that's
Scott Benner 31:05
what you're like, we're gonna have to get one of those foster kids back, I think
Katie 31:10
you gave us enough information to just be dangerous. So we had to really,
Scott Benner 31:16
yeah, right? Because that that generalized look your Pre-Bolus 15 minutes before you have to get some isn't. It's not the whole idea. And no. And so they gave you, you know, we talked about this all the time, like they gave you the first sentence, but not the rest of the explanation. And now there's going to be some CD out there is thinking like now, that's why we don't tell anybody. But that can't be the answer, either. You know, the answer can't be all or nothing. Right? You know, and if you don't know enough about Pre-Bolus, to explain it to somebody, then don't. But if but don't tell them, it doesn't exist say look, there's this idea that I don't completely understand that we should all look into together and try to make better like, Look, it's just like anything else. If I was an auto mechanic, and I didn't know how to change a fuel pump, and I took your car and you were like, hey, my fuel pumps bad. I was like at school, give it to me, I'll fix it like that, right? That's wrong. Okay. So you can't if you're a CD who's really good at 95% of the stuff you do, and you don't understand 5% of it, and it's important to other people will figure it out. And then so that you can speak to people well,
Katie 32:17
right. Oh, and I go over carb counting and all of that it just mentioning, glycemic index at that point would probably be
Scott Benner 32:24
helpful, tiny bit helpful. Yeah. Or, and explain it in a way. And you know what to I think, I think that Jenny being on the show, is incredibly valuable. Because Yeah, Jenny is a CD. And she does take those big ideas. And I I'm gonna tell you right now that those episodes are not scripted. And they're not even, they're not even laid out in like bullet point form. Like, I tell her, she logs on, she's just gotten off the phone with somebody else. And I say, hey, Jenny, today, let's do this topic. And she goes, Okay, and I can watch her clear her face. And then I start talking to give her time to settle into it. And then she then I ask her a question. And she begins to answer. She doesn't have to say, oh, let me go check with a colleague, or I'm not 100% certain, or anything like that. And in the span of two or three minutes, she can roll through what glycemic index is, in a way, when you hear it, you go, Oh, I understand what that is. So why why is it possible for some people to do it and some people not to do it? It's not, it's not rocket science. I don't want to overuse a stupid phrase. But it's, it's the idea that some foods hit harder or hit longer or hit shorter. Right? I mean, there now I just explained it, Nate's and would
Katie 33:42
have been great to know right, then. Yeah.
Scott Benner 33:45
So I think the bigger problem is and not to joke about it. Not everyone's a great communicator, that that really sometimes begins to be the issues like you could be sitting across from the CD or a doctor or something. Anybody who really does 100% legit understand what they're saying, and they're just not very good at explaining it to you. Right? And you wonder if that wasn't your situation, if that person who said Pre-Bolus 15 minutes, had all those other thoughts in their head and just didn't, yet couldn't, didn't? Wouldn't shouldn't like whatever reason couldn't get it ran out of time. Yep. Oh, geez. Look at the time. Get out of here. Oh, by the way, don't eat macaroni and cheese or pizza. Why not good. I would have been nice even if you would have got that. Because you probably did you fall in that thing where like, Oh, this is working. And then you can write you got all like, I'm just gonna say cocksure, is not actually something that needs to be believed that that's a real word. Right? So you got all like fully yourself. I'll probably end up leaving it anyway. Just I'm not 100% sure. But you got awfully yourself and you're like, let's do this now. And right.
Katie 34:50
Yeah, we, you know, we were starting to figure things out. We're Pre-Bolus thing. Got the Dexcom you know, our lines are looking good. And then the
When South
Scott Benner 35:02
ardens, first of two seizures when she was really like, just diagnosed like, you know, she was still like two and a half years old. Definitely came from that. Like where I was just like, this is easy. Why do people make a big deal out of this? We should try Chinese food. Someone call 911. How does the right How does the glucagon work? Well, it seriously was like that. And it was really because things had gone so well. That it just felt like, Oh, this is easy. I did what they said. And it worked. Except back then. Imagine that her a once he was like eight and a half or nine. And I was still thinking like, I was doing terrific, because sort of that's what they told me it was okay. Right, you know, so I had a really good feeling, but I thought it was doing great. Now I look back in hindsight, I was doing terribly. I didn't understand any of it. And I should not have been in charge of giving it two and a half year old insulin for Chinese food. You
Katie 35:58
know, that's exactly how we felt. Really? What did we just do? And of course we correct and then the mac and cheese hits and now we're 400. And yeah,
Scott Benner 36:08
drinking juice on top of the macaroni and cheese. It's gonna hit in a little bit, and then you would listen. in a million years, would you have had the nerve to give her more insulin? effa. But not at that point. No. No. So you let it ride all the way up and sit there? Do you remember if you ever corrected it? Or did you just wait? Oh, I did.
Katie 36:25
Yeah. Well, we had a running around jumping on the trampoline. I'm like what it was, it was not budging. It took awhile. That moment, we're like, okay, yeah, we know nothing about this.
Scott Benner 36:35
Do you? Do you ever like I, you know, you know, when people put voices in the pets heads, like, you're like, Oh, my dog's thinking this right now, when kids are really little, you do the same thing. And there were times where I would look at art and think she's got to be looking at me thinking how did I get stuck with this? Yes, this guy is flat out gonna kill me. But I can't reach the doorknob. And I don't know how to drive the car. So I'm stuck hoping that he doesn't. Which is really parenting, you know, on every level just gets a little amped up around diabetes. So let me ask you a question here. As I look through our correspondence back then from February, I see that I came in with some classic advice, which of course was not advice even though we were not on the podcast. But I just said to you, I said my thoughts are simple. You're a one C and your standard deviation are spectacular. I would not change what you're doing. Do not think twice about what anyone thinks of you. Follow your heart on this. What they've done will jack up your blood sugar's excuse me what they've done will jack up your blood sugar's Have you bolusing constantly and cause lows. And then that was it. You kind of came back and thanked me for the response and everything. And then I think, yeah, so you still looked a little like, you looked a little dicey and your next response. So I said, Hey, listen, you'll you'll be fine, you'll be fine. They probably set those safe limits for everyone. And they'll probably be thrilled if he figured it out. And you don't need their help. And then I said, I'm here if you get stuck, but here's my question. Were they throat? Or did they look at you cross?
Katie 38:12
Oh, the first.
The first one bat. Okay, so Oh, I remember. We went back and saw there's two or three windows in the office. I'm not sure we typically just see the one. But I with the schedule. The next appointment was with a different endo that we normally see. And I don't think he had he'd never met us. just looked at the favors when we were out of there. Like it was a non issue. So
Unknown Speaker 38:39
Oh, really just a
Katie 38:42
different guy.
Scott Benner 38:44
You're You're cagey. Yes. But But when you got there were your numbers more like what you had prior to pumping by then?
Katie 38:53
Yes, we had dropped. I think at that point, we came in and dropped about a 4.9. And, and he gave us some he wanted to change the correction factor or something. And we smiled and nodded and said, Okay, no problem. And, and, and that was it. And we left. He didn't know us. We've never seen him since
Unknown Speaker 39:14
I went kind of avoided the situation.
Scott Benner 39:16
So I get this feeling sometimes, like I maybe I'm speaking out of school, but this is my interpretation. When Arden goes to the endo, you know, they come in the door. And there's this like tension, like because they're running from room to room doing this thing over and over again, where they're probably having experiences where they're mostly going, Oh my God, this person's like gonna die. You know, like, I can't I can't get through to them. And I don't know what to say about it. So this is nurses, when they come into our room. I see their shoulders relax, everything becomes friendly. They're sitting down there and we're sitting back in chairs instead of sitting in chairs, and we have this nice little conversation. How are things? Oh, they're good. What have you been up to? We change this art. had this happen her period really was tough in this month, but we fought back, you know, blah, blah, blah, then they usually look at me and they go, where do you expect her agency to be? And I go, and oh, no, I always get higher. Like, yeah, and then Arden goes, he always thinks it's gonna be higher. And then it comes in the room, they look at the paper and they go, alright, it's fine. You have any questions, any prescriptions? And then that's it. I always think like, I'm there, like, providing them like with a 15 minute like vacation from, from the whole thing. And I imagine what you said was similar. Like, the guy probably came in and looked at the papers. It's like, ooh, I don't have to
Katie 40:34
do anything. Like, right. Yeah, five minute appointment,
Scott Benner 40:38
either. Now, here's your scripts. I'll see you later.
Katie 40:40
Yeah, God, what do you do? And then we've been back a couple of times since I believe, and two or three times and they were back to the original lady, and she's very happy with, with how it's going and has no, no complaints. And so I think I figured out that we know what we're doing
Scott Benner 40:58
fairly safely. That's excellent. That's excellent. I've scrolled down to the last time you sent me something. And I realized you're not talking more than I thought we had. But, um, but there's something really interesting here that I would love for you to go over and tell people how you took care of it, but you had like incredible anxiety coming, like thinking of changing from MDI. Yes, and was that why was that first of all,
Katie 41:23
I just think we were comfortable. I just knew what I knew what I was doing. The poor kid was getting, you know, six 810 15 shots a day depending. But, but I knew what to expect. I knew what was going to happen. When I we, she was going to eat a certain meal, I knew how to dose for it. I knew when the timing of when she needed those shots, and it was just rolling. It was just working. And we're, we like you said for kids, it's busy, we travel a lot. We're always Out. Out and About we eat out a lot and it just it worked. And so I was I knew in the back of my mind how much more freedom we were going to have with this pump but to go in and mess up everything I knew and had worked so hard to learn. What made me really nervous. Yes.
Scott Benner 42:14
And so what you did was you tried to like educate yourself before doing it.
Katie 42:20
Yes. Before we I did everything I could to listen to anything any podcasts that had anything to do with it. I read anything I can find to learn learn I was trying to figure out you know, okay, exactly what put basal rate Do we need to run based off what she's getting? So I already knew that going in what what I wanted to set it with to start with and of course it was much higher than what they wanted to but like I said, we fixed that right away and then have made made adjustments you know, from that point, learning listening the pro tip series has helped a lot setting basal rates we probably test those out once every week or two two weeks or so just to make sure we're still where we need to be plus I find that especially if we test that night she will we have a lot less real flatline overnight normally, and I can sleep so yeah so so those are my favorite nights
Scott Benner 43:23
to stay good to stay ahead of it so that you can have those night's sleep by the way I think there's research out now that says lack of sleep is a precursor to Alzheimer's which has now got me worried well I'm gonna have that Yeah, well, I better I better Can I bank sleep like can I get extra now but but your point is if you keep ahead of those bezels and yeah, then you get all that it's like free time overnight right? Yeah, there's no you know for the most point and your your daughter's younger too so there's not a lot of there's not a ton of growth spurts going on yet like she's probably just growing pretty consistently and right. So this is a nice time like I always say like steel you're still you're able to see overnight definitely now it's this it's a third of the day where there's no food no activity you know and you can you can get great steady blood sugars that help offset when you do have a problem during the day and then when you do have something happened during the day you don't have to be like oh my god like you still think okay, well all right, I'll fix this and I'll get it back. But it's not the end of the world this spike isn't gonna take us to like a nine a one say it's gonna take us to a five and a half maybe. Right right. I listen.
Katie 44:34
No, we we have date I mean she's, she's in school now she's you know we have things happening today we we will spike every now and again and lose control but we do get it back and and even even those don't, they don't seem to affect the ANC much and they don't even our standard deviation is fine. And we do mess up like we miss a lot
Scott Benner 44:59
of course. No, yeah, I don't think that, um, I don't think anybody doesn't honestly I do. And Arden, you know, sometimes it's like, oh, once you say about insulin, I didn't do that, you know, like that that's still, that's still happens, it happens that it happens, everybody should probably expect it to happen. You should not get comfortable with it and then just let it go. But you should expect it to happen and you can't like freak out, you sort of have to keep going. I think this is you really did something kind of special here. Because you may not believe it, because it's just your life. I mean, you believe it because it happened to you. But this is such a common feeling for people. The idea of change in general, is difficult. The idea of changing from something that you really have a handle on that That to me is just like downright frightening. Like I used the word anxiety i would i would have been scared like when we move to a pump. I was excited because it's not like we were having some great success on MDI, you know, I right, you're doing you did with MDI, a million times better than I on my best day with MDI ever accomplished. rodden. So mean, you had that going? I was just like, Yeah, great. Let's try something else because this sucks. But it didn't suck as much as I sucked. Honestly. No, no, seriously. There's no no, you know, back then. I mean, we didn't have a CGM. We had a meter. God knows how accurate it was or wasn't. And I really wish people could like, feel like Arden's diabetes supplies. Were a vial of insulin, a couple of syringes, test strips, and this meter that was like an inch and a half long and an inch wide. Oh, that's what we carried with us. That was the whole entirety of it. Yeah, you know, and it Go ahead, go crazy. See what you can do. And what you could do was what you know what we did, which was count the carbs, put the insulin in weight a little bit, eat, weight, test, weight test, in jacked, put it around for a nap, ask her to go run around, you know, right? Pray that time would stand still. So the next meal wouldn't come up again, and want a snack?
Unknown Speaker 47:11
Like,
Scott Benner 47:12
you've maybe no idea how many times in my life, I've thought in my head or mumbled out loud. Oh, god, she's gonna eat again. Oh, she's hungry. And you look at the clock and you go, Oh, of course she is. I'm hungry, too. It's noon. It's five, you know, but it just felt like, Oh, dear god, it's time to eat again, like this can't just keep happening over right over can it like, it has to stop at some point. And it didn't, you know,
Katie 47:39
and I think when when she was diagnosed, so young, I the anxiety hit right then that oh my gosh, she's gonna have all these complications, who, you know, diabetes her whole entire life basically. And so that fear of high numbers almost like setting right away and so that we, you know, I'd see anything over 120 and I'm freaking out. And we got to get this down. And so I think that kind of drove the that in, almost killing her with mac and cheese to to get on the get on the research and start listening and finding you and and figuring out what what we could do to get a handle on this. I still thinks we have moments of honeymoon, like spurts of days when usually kind of comes in twos or threes, when her pancreas decides to work, and we fight lows, but a lot randomly, but they and then it passes and we're back to the old old settings. But I think one of the main tips we got early on in the podcast when when we started listening was you know, we could catch a falling blood sugar so easily. Then sit and stare at that, that high number for all night. And so once we learned and we're comfortable with like, hey, juice works, or these jelly beans will work. Then we really that's when we could could kind of go in and hone in on all those numbers. And if it was too much, it was too much and we fixed it. Yeah. And
Scott Benner 49:08
and she's fine. That's excellent. That happened to us last night really Arden like because the the girls don't have school the rest of the week. It started with Hey, Bella's gonna come home with me after school. And I was like, Yeah, sure. Bella, come home. And then I went upstairs to work on my presentation for this weekend. I'm doing a you know, by the time this comes up, it'll have been six months ago. But I basically am going to do my jdrf talk with an extended q&a locally. So like this free thing for people and we've got like 50 people coming already, just from the podcast, just saying out loud on the podcast, which was really cool. And so I'm putting my presentation together and everything. And I see a car pull up. And now Nadia is here. And so I'm like, Okay, I see where this is going. And then I hear some I hear this Bang, bang, bang, bang, bang, bang, bang, loudness and I'm like that sounds like so like I can tell her friends as they're coming in. Right. So now. Now in my mind, I'm going art in art. Didn't I brought Bella home I saw Daniel, or Nadia come in, so I can hear Sandra. And then sure enough, Olivia came in. I was like, Yeah, they're all here now. And so like, everyone's here, which now means we're on the hook for dinner. Like, I knew that. I'm like, oh, we're gonna have to feed these girls. So I get the call from downstairs, like, you know, um, you know, can you come down, I come down and Kelly's down there. And she's like, we're trying to figure out what to get the girls to eat. And I was like, and she goes, it's between pizza and Chinese. And I said, well, Chinese is more expensive. So get pizza. But somebody was like, buying all these girls, Chinese takeout is gonna cost like $200. And pizza will be 35 bucks. So we're a pizza. I've made the decision for everybody. Congratulations. And the girls are just nodding like, they really don't care. That's the key. By the way, for any of you people out there. You knew parents are like all into giving kids choices. They don't care. It sounds like it's a pizza. And then it comes home. And we bolused heavily heavily for it. And because there were fries, and there were a pizza, I saw broccoli was there. And I'm like, Oh, good. There's some vegetables. And then, you know, like, there was a cheese steak. And people were cutting up in a little sliver. So I'm like, I don't know what's happening. So I was like, really aggressive with that. And maybe like, an hour later, she was just bright it like 73. And I was like, This is not gonna hold. Like, I know, it's not gonna hold right. They said the minute it tried to drift down, I had seen these, um, they must have gone to the grocery store all of them together, there was a big bucket of eclairs in the, like, little miniature eclairs this one a lot. Two of these girls have their period right now. Just I won't say which ones. And.
Unknown Speaker 51:39
And so, thank you,
Scott Benner 51:40
you think and I was like, so I see what's happening here. Right? So I just texted our nose a crunchy grab a couple of those eclairs because they're a little tiny ones. And, and she's like, okay, she ate them. And I think maybe 20 minutes later, when I didn't see it move the way I wanted it to off of the food. We like say, hey, kill the bazel for like a little while, you know, and let's see what we can do here like turn insulin off for a little bit. So she did write and then we caught it. And it was good. And like it never got low, but it's what you were talking about. Like I'd rather stop a low than a high like I was just like, obviously too aggressive. But right, not that over. And crazy. Like with all that spread of food out there had just eaten six more bites of something else. I would have been Right. Right. You know what I mean? Like so I'd rather play in that pool than the one that the one that that has a 250 or 300 all the time and scampering around giving extra insulin and all that.
Katie 52:41
Right. And we definitely have a carve like that I'm like, type out a little more than I think it is just just to be safe. Yeah. And then we'll we'll fix that if we need it. And it's it. We've had to convince the the, I guess, nurse, or whoever's at our school, we're working with her that that is definitely the better way to go. Then. He always wants to back off on Infinite like, No, no, add a few more. Add another half unit to that, oh,
Scott Benner 53:07
I hear what you're saying. But I'm just gonna reach over here with my foot and stomp on your foot right on the gas pedal. And there we go. Keep going. No.
Katie 53:14
Don't you don't want to go down that road. Yeah,
Scott Benner 53:16
if we're gonna get low, I'm gonna make her low, it isn't gonna happen by mistake. Right? And actually to, it's funny, because I'm now thinking about my presentation. That is really something that I talked about when you know, when I only have an hour to take a person who's never heard me before and put them in the head of the podcast, like, there are certain things that I that I hit on. And one of them one of them is I'm just like, you have to be aggressive like you You, you need to punch first. Like, you know, because at least what happens next, you know, you did, right, right. It was kind of put into boxing terms. I'm like, you know, if you get into a fight, and you curl up into a defensive position, you put the other person in charge, like you're putting the you're putting the insulin and the food and the carbs in charge. Like it's making the decisions, like at least if you swing with that with that bolus, and you hit first and you're wrong. And you get lower, you know, you cause that like you have cause and effect I did this and that happened. So now I know how to fix it, which is what I did last night with Eclipse I was like Oh, I know what I did wrong. I'll just add this that will fix that. But had I backed off or been like you know erred on the side of caution. then all the sudden that arrows going up the blood sugar's jumping up. I don't know why. Like Like I have no idea why I don't know how do I how much more
Katie 54:35
when people ask that ask us all the time we're like well, how did you know more to correct with them? Like I
Scott Benner 54:39
don't know. Do you actually say I don't know more insulin because I
Katie 54:43
don't know. Yes more a lot more.
two arrows up not good.
Scott Benner 54:47
Yeah, yeah, right. I see you Katie. You are like my Luke Skywalker in this situation. I'm Yoda. So you you really are talking the way I talk about it. You're like, I don't know. You're two hours bad.
Katie 55:00
We moved. So we were living in Houston, we saw the end of one time and moved and then didn't see anyone for six months. So your podcast was how we learned to take care of diabetes. So
Scott Benner 55:11
I'm both grateful and sorry, that's Yeah,
Katie 55:14
we you know, there was okay. My husband's like, you want to do what from you heard it on? A what?
Unknown Speaker 55:21
Like, yeah, I think it's gonna work. Yes, kid.
Scott Benner 55:26
You, she was probably like, he looks so stable when I married you. I didn't really like what was coming, but you're not in charge of the kids.
Katie 55:34
The podcast guy says, To
Scott Benner 55:37
do this, listen, I don't know if you realize this or not, sweetie. But that man had to buy a microphone and have a computer to get these thoughts to me. So it was he's really all in on it. Yeah, at that point, when you were listening to the podcast, I was on a $200 microphone. So the my entire in on the podcast was $400. So it cost me $400 to tell you how I use insulin at that time. But my point is I had no, like, I could have been a lunatic.
Unknown Speaker 56:06
Right, right. And we had juice boxes. I was ready.
Scott Benner 56:10
You really are. This is the greatest thing ever. Now I realize why you're on the podcast. Because as I look through our notes at the end, we ended up speaking back then on the phone. Yeah, so something happened on that phone call. And by the way, I don't want to seem bizarre about this, because I really am not. But I do really talk to a lot of people. And so I'm not gonna lie to you this morning. I looked at I was like, Katie, Katie, Katie, don't remember. And I tried really hard I as Katie was getting online. I'm like, Hey, where did you reach out to me at first? She told me I was like, oh, maybe I can find it there. And I started looking. But these conversations, like yours in mind. I'm sitting here now even though I don't fully recollect it. I believe that I must have had such a good time talking to you on the phone that I The last thing I must have said to you was you should come on the podcast?
Katie 56:59
I think so. But
Scott Benner 57:01
yeah. So and I was right, because you're delightful. And this is a good episode. I can tell. I've been doing this a while. Trust me by 53 minutes in when they're not going right. I'm like, Oh, I have to edit the hell out of that one. But, but But no, seriously, that's never happened. And I'm actually I'll probably edit that out because I don't want people to think that happened. But But nevertheless, it really is. It's very big to me. You're like the regular. You're like the regular version of Jenny to me. And I'll tell you why. Because when I first had Jenny on the show, and she was just on as a guest, when I got off, I thought, Oh, I love the way she talks about this. And you know, you could say that that's ego because she talks about it the way I do. And I just liked it. Because she because she was saying what I was saying. But I like I love your attitude. Like just now when you said that you're like two hours up? Oh, it's almost like, I wish you could hear it my head. It's not even like words. I just hear the I see the arrows in my brain was and I'm like, Oh yeah, insulin, how much? How much? I don't know more.
Unknown Speaker 58:08
What a lot more. Oh, a lot more.
Scott Benner 58:11
It's moving really quickly. Do it again. You have no idea how many times is Arden is bigger now. So she uses more insulin than right in the past. The other day I saw them. I was like, I got a diagonal up. She got a diagonal up arrow. And I was like, I texted him like, Hey, you got to put in this much insulin. And she's like, Alright, I did it. She put it in. And five minutes later, the change that happened with the with the number I was like, Ooh, that wasn't enough.
Katie 58:36
Okay. 20 point jump.
Scott Benner 58:38
Yeah. So I texted her back. And I was like, you know, do do more. And here's how much more and she goes, the other bowl is still going in. I was like, Well, when I get done, put this in, right. And she's like, you're a pain. I'm like, I'm not a pain. It's not me that ate the muffin. But I don't say any of that. I just oh yes. I'm a pain, sweetie. I'm so sorry. And you know, like apologize. And, and there's more put more in. And then she's like, she actually said to me, she goes, this seems like a lot. And I went it is. And if we're wrong. We'll we'll try to trade off for bazel later. Right, you know, and that's it.
Katie 59:11
Well, she our little one. She runs around the neighborhood with the friends and the phone and we see stuff like that. We're like, oh, what's going up, come back? Well, bola third. She runs back off. And we've had to do that five minutes later call her back. She's like, ah,
Scott Benner 59:25
I just went back here.
Katie 59:27
Yes, we, you know, but with dexcom she, you know, she can run off she goes off with we can't text her. She can't really read but we can call her and, and we can get she'll do what she needs to do. We've also taken that aspect and put it to work.
Scott Benner 59:44
It would just look her in the face and be like, and he's learned to read pretty quick here.
Katie 59:47
Yeah. I send a red.at scale.
Scott Benner 59:52
You guys do stuff like that? Yes. Oh, that's brilliant.
Katie 59:56
Code. Yeah,
Scott Benner 59:57
yeah. red.is Skittles. Yep. So Do you use that in a moment when you're like, Oh crap, she's gonna die before I get to her.
Katie 1:00:05
yet. We'll call in that situation.
Scott Benner 1:00:08
Hi, sweetie. Yeah. Tell Billy to be quiet. I want to say something really important right now. Drink the entire juice shut your bazel off all the Skittles. Mommy's running towards you right now.
Katie 1:00:18
Well, we'll send one of the older kids with a Capri Sun. We're like a meter out in the middle of the road.
Scott Benner 1:00:23
there and drink. That's brilliant. Your children are like carrier pigeons
Unknown Speaker 1:00:25
for dying.
Katie 1:00:26
Yes. Yes. They don't love it. But you know, they don't love it. Work. Do you love
Unknown Speaker 1:00:32
paying for their clothes and boarding and food? No.
Unknown Speaker 1:00:36
Take the damn Capri Sun run up the stream.
Unknown Speaker 1:00:38
Yes, go. You know what?
Scott Benner 1:00:39
That's a lot easier than going to work and buying mashed potatoes and making them and then watching you not eat all of them.
Unknown Speaker 1:00:47
Exactly. Is
Unknown Speaker 1:00:48
that to make a person murderous, just in case right in your shoes. You decide you don't like? Yeah. Oh,
Scott Benner 1:00:53
my feet got bigger again. I'm like you are lying. You don't like them now that you got them home. You know, you can't cop to it. You're like, I know what's happening. They're horrible.
Unknown Speaker 1:01:04
Yes.
Unknown Speaker 1:01:05
Okay, you and I get along great. Yeah, this is nice. Did you come see me when I was in the law? I spoke there two years ago.
Katie 1:01:13
in Cincinnati. It wasn't either. Yes, we had just moved here. And so that was that was kind of how we learned
Unknown Speaker 1:01:22
that how you learned about the podcast? Uh, yeah, I think so.
Scott Benner 1:01:26
Wow. Look at you. I love that you kind of don't know your life.
Katie 1:01:29
I know. It's a blur, though.
Scott Benner 1:01:31
I've never I've never said this to anybody. Like I've never been overtly like sexual at all on the podcast with anybody because I'm married. And so you, but it's hot. A little bit how you don't know what's exactly happening? I don't know how to put that another
Unknown Speaker 1:01:44
20 Kids What's going on?
Scott Benner 1:01:47
Okay, you know what it is? I realize it now. You seem like you have a drink and a half and you
Unknown Speaker 1:01:53
and I don't drink.
Unknown Speaker 1:01:55
But you don't mean like you're it's like you've given up just a little bit?
Katie 1:02:00
Yeah, yeah. Well, cuz it's either that or I don't know what, but not good.
Scott Benner 1:02:05
No, I really believe I do believe that. It's very healthy. I mean, not not the not the drinking. But the that that kind of feeling like, you just have to let some of it go. Like, I like that you don't have recollection on everything. Like I seriously mean that I'm similar in that I, I don't hold on to things, like too tightly. And no, if you occasionally when you guys are listening this you have no idea that it's not easy for me to like, sit down and really go Oh, alright, that is what happened. Here's what happened next. My brain really is a little more like freewheeling and right? I'm impressed with myself when I when I can tell a story. When I get done. I'm like, Okay, this is what happened. I didn't even have to make up. I didn't even make up anything there at all.
Katie 1:02:47
Oh, that kind of is bad. In the middle. You know, you get done with a meal that you've made all these adjustments. And it worked out really well. And like know, how much did I give there for that? Like, I don't even know
Unknown Speaker 1:02:57
that I ordered?
Scott Benner 1:02:58
Pardon? So like that. Like, sometimes I'll just be like, Hey, what's it asking for? And she'll put it in and then five minutes later big how much when she was I didn't look? Right. Like you didn't even see it when you push the button. She knows I did. But I don't remember, like, okay, and to me a little bit. That's a comfortable, healthy sort of vibe around diabetes. Like you're not constantly running around with numbers in your head all the time. And you know, it's one of the biggest thing, right? Like, it's from this presentation that I'll start giving, you know, all over the place. I'm going to tell people like, everything I just said probably seems incredibly complex and time consuming to you. But it really only is not. It's not Yeah, no, in the beginning, maybe a little bit but then boom, right? Although in fairness, you and I appear to be the same person. So it's possible. You're just like, wow, I found my doppelganger who already understands diabetes. I'll just write do what he's doing.
Katie 1:03:55
more insulin. That's all I need. I don't need a number.
Scott Benner 1:03:59
By the way to tell your husband I agree with them. Yeah, you're insane to listen to me.
Katie 1:04:06
Well, on the school nurse, it's funny because the pump I guess, has a carb ratio in it. And she I have to send her the number of carbs in the lunch or whatever to put in and I have no idea. I just know how many units the lunch will take. And so I'm having to do calculations now going okay, well, I would give it this many units. How many carbs is that? So I can send the lady how many carbs to put in to the pump? I
Scott Benner 1:04:29
don't know how to think of it that way.
Katie 1:04:30
Oh, my God. Oh, no. Just give her two years.
Unknown Speaker 1:04:35
Yes,
Scott Benner 1:04:36
please. Stop. I'll tell you that is that it really is it's heartwarming to me. I want you to listen, all of you do what Katie's doing, if you can? Yes, she's exactly picked up what I've put down into use the 70s vernacular. I really am like super, like it's embarrassing. After talking to you for this That I didn't remember talking to you before. Like, I feel badly about that. And now that it's happening, but really, really amazing like how you did this is astonishing. And can I ask what your daughter's one sees right now?
Katie 1:05:14
Um, we just went in October and she was 4.8.
Scott Benner 1:05:19
Jesus with that one. Do you let her eat or she she's,
Unknown Speaker 1:05:22
he eats all the time.
Scott Benner 1:05:24
Yeah. And no, no restrictions to her.
Katie 1:05:27
No no restrictions and she eats this on Fridays at school, they have a they call it a snack cart, it is a dessert bar. Why they have the dessert bar feel like she she has her popsicle with lunch every every Friday at school, she eats IV nothing but carbs. I feel like but she's you know, we are she's good about ordering of foods, you know, eat the protein first. And, and so that's kind of been ingrained in us. We don't have to tell her to she just does it. You know, but just influent we just keep it Keep it coming.
Scott Benner 1:06:06
That's really seriously your this is very, it's I mean, we joke around a lot in this hour. But this is incredibly amendable. Like I that you've picked this all up this quickly, and put it into play. And came overcame the anxiety of the switch from MDI, to pumping. And, you know, share this with everybody. I think this is really cool. Because I think you know what I'm what I'm gonna say to the people listening is is that, like Katie's vibe is the goal. You know what I mean? Like if you can get somewhere near this, this is going to be a healthy way to roll through life with type one.
Katie 1:06:37
Right? And it doesn't it does not take time. I mean, it did at first like you said, but we don't think about it. We glance on my phone send attacks give her a call whatever we need to do and yeah, I don't think I don't think she has any idea that her life is much different. With with diabetes, she eats with Pre-Bolus She doesn't even know what I mean. I just run in hit her whenever I need. I know it's about 20 minutes before we're going to eat. I don't think she even is aware of of the inconvenience this could be to her she has no idea.
Scott Benner 1:07:10
You're like diabetes Wonder Woman.
Katie 1:07:11
No. But like I said, we miss we screw up Don't get me wrong. I mean, I don't know how you
Scott Benner 1:07:17
wouldn't make it such a Yeah, it's such an up in the air thing that you know, every once in a while. You just Yeah, right. Yeah. But oh my god, seriously. So I look I'm I'm gonna go because if I don't, I'm gonna I'm gonna ask you to leave your husband and come meet me somewhere. Right? Really like Katie and I, you know what would end up happening right is like two weeks into it. We'd be so similar that we'd get nothing accomplished have no ability to make money and have to like leave.
Unknown Speaker 1:07:46
What we do yesterday
Scott Benner 1:07:48
would just be a complete disaster. Like, like five seconds. Yeah. Oh, my God, my wife so counterbalances all of my stupidity
Katie 1:07:57
got on someone different.
Scott Benner 1:07:59
Oh, my God. Absolutely. Katie, seriously, I really appreciate you doing this. Thank you so very much.
Katie 1:08:03
Well, thank you. And thank your your wife and Arden and just for put it letting I mean, everything being put out there. It really helps other people. So I appreciate them for
for letting you put their life out there.
Scott Benner 1:08:18
How do you How did you know that? Maybe they're maybe they're locked in a closet.
Unknown Speaker 1:08:22
I can tell.
Scott Benner 1:08:24
Maybe they don't really exist. Maybe I'm just really good at making up what diabetes is like,
Katie 1:08:28
in our whole Yeah, we base our whole
Unknown Speaker 1:08:32
medical care off.
Scott Benner 1:08:34
By the way, I that would be a fantastic review for the podcast.
Unknown Speaker 1:08:40
Yeah, I'd appreciate that. If that popped up online somewhere.
Unknown Speaker 1:08:43
I believe that.
Scott Benner 1:08:46
Doctors Hmm, I just listened to this guy. I random met on the
Unknown Speaker 1:08:50
internet. Don't need an endo. Never said eyes on him before.
Scott Benner 1:08:54
He might not even be real. It's hard to tell. He says he has a daughter. But you know, he doesn't really share pictures ever. She might not exist. But trust me, she's here. I can feel the anxiety in my spine from her being alive every day. Yes. All right. All right. Well, thank you. Thank you. I really appreciate you huge thanks to Katie for being a good sport and sharing a very real story about what it's like to move to an insulin pump. Thanks also to Dexcom makers to the G six continuous glucose monitor. And of course ardens insulin pump the Omni pod, get your free no obligation demo of that wonderful tubeless insulin pump today at my Omni pod.com forward slash juice box. The diabetes pro tip episodes or a diabetes pro tip comm are right there in the feed of your podcast player. Thanks so much for listening. I'll see you soon.
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