#1343 Mini Scott
Adalia and Scott's brains work exactly the same.
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Scott Benner 0:00
Welcome back friends to another episode of The juicebox podcast.
My guest today is 18 years old. Was diagnosed with type one diabetes when she was 15. Adalia wanted to be an astronaut before her diagnosis, and she and I think, oddly alike, this is her story. Nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan. Are you an adult living with type one or the caregiver of someone who is and a US resident, if you are, I'd love it if you would go to T 1d exchange.org/juicebox and take the survey. When you complete that survey, your answers are used to move type one diabetes research of all kinds. So if you'd like to help with type one research, but don't have time to go to a doctor or an investigation and you want to do something right there from your sofa. This is the way t 1d exchange.org/juice box. It should not take you more than about 10 minutes. Don't forget to save 40% off of your entire order at cozy earth.com All you have to do is use the offer code juicebox at checkout. That's juicebox at checkout to save 40 percent@cozyearth.com
the episode you're about to listen to was sponsored by touched by type one. Go check them out right now on Facebook, Instagram, and of course, at touched by type one.org. Check out that Programs tab when you get to the website to see all the great things that they're doing for people living with type one diabetes touched by type one.org. This episode of The juicebox podcast is sponsored by the Eversense 365 that's a CGM that lasts a full year, ever since cgm.com/juicebox. One, year one CGM. My
Adalia 2:05
name is Adalia. I'm from Ontario Canada, and I am 18 years old, and have been diagnosed with type one diabetes since I was 1515. Three
Scott Benner 2:13
years, right? Yeah. 1518, Adalia. Adalia, yes, your parents make that up. Were they drunk? Tell me more.
Adalia 2:24
They founded a baby book supposedly, yeah, I don't know. It just kind of was something that they found interesting. And then I don't know if they made up their own pronunciation for it, or if, like, it actually said a pronunciation in the book or whatnot. But yeah, I've never met anyone with the same name as me, so I
Scott Benner 2:42
also don't think you're going to you have any brothers or sisters, like the Rio Grande day or anything like that.
Adalia 2:49
Yeah, I've got an older sister who's married, and then two brothers, one older, one younger. So I'm the third of four,
Scott Benner 2:56
and you're 18 now. Yes,
Unknown Speaker 2:58
do they? You
Scott Benner 2:59
don't need to tell me your your siblings names, but are they all very unique, or is it like, yeah, okay, it's not like, Mike, John, Pat and Adalia.
Adalia 3:09
No, we've all got pretty unique names. You
Scott Benner 3:11
don't need to tell me their names, but if you rate them one to four, where's yours on the hippie cookie scale? Oh, probably like two, okay, somebody else, somebody else has one that's wilder than yours?
Adalia 3:26
Yeah, a little bit. My sister's name starts with A J, but it's pronounced as a y.
Scott Benner 3:32
So are your parents? I don't know how to ask this. All right, you're 18, right? Yeah, okay. Are your parents weed smokers?
Adalia 3:38
No,
Scott Benner 3:39
they're not they drink alarm,
Adalia 3:41
nope, no.
Scott Benner 3:42
All right, I'm okay. Do any of those siblings have type one diabetes or other autoimmune issues? No, none
Adalia 3:51
of my siblings have any autoimmune, anaphylactic allergies and a heart condition. But like, that's kind of it. Other than that, I'm the one with the most of the medical stuff.
Scott Benner 4:02
So how about your parents or grandparents down the line, stuff like that. So
Adalia 4:07
there's nowhere we can trace type one to but we do have, like, other autoimmune like some thyroid things, some like celiac and like different stuff like that. But like, no one in our family has type one. I think there might be one, like Great aunt, great uncle, or something that has type two. But, yeah, all right,
Scott Benner 4:27
well, that's not interesting. Then this was pretty surprising for you.
Adalia 4:31
It was, yeah, it was quite surprising. We were not expecting it. Yeah, it was just, it did kind of come out of the blue. And when we went in and I got diagnosed, like, my mom had thought, like, oh, maybe, like, you have mono or something. Like, at first we're like, covid or strep, because it was like, mid pandemic 2021, and then got tested for those, it was all negative. And then finally, my mom was like, Well, this is clearly not getting better, so we'll go into the ER. And she was like, you might have mono, because we had some. She's with a chronic mono with my younger brother, and then, surprise, it was type one. So I said,
Scott Benner 5:04
like, a little menagerie of issues. Do your parents have issues that aren't autoimmune,
Adalia 5:09
not really a little bit so like, my mom has had, like, a couple different things, like she had thyroid cancer, so she doesn't have a thyroid and had that removed. So she's on thyroid medication, but because she just doesn't have one. And then she also is kind of self diagnosed heliac, because she didn't want to go through the testing of eating gluten to figure out if that was the issue. So she eats gluten free and dairy free, because our body just doesn't respond to foods like that very well. She just figured
Scott Benner 5:39
that out. She's wandered outside one day, yelled to your father on the snowmobile, zebedia, I think I can't eat milk or like something like that.
Unknown Speaker 5:48
Oh, sure, yeah, yeah, yeah.
Scott Benner 5:50
It happened exactly like that, right? That's what I figured, too. How come you don't have, like, a real Canadian accent? Do I not is it gonna come is it gonna come out? I don't really wait a minute. This is messing me up. Can you give me an oh yeah,
Adalia 6:03
oh yeah,
Scott Benner 6:04
that's a little better. Okay. I mean, what a bummer. Sound like you're from, like, I don't know, the middle of America, you're screwing with me. I mean, there's, I know. I mean, listen, I accept your apology, I guess. Okay, that's fine. You're
Adalia 6:22
welcome. Was that Canadian for you? The story? No,
Scott Benner 6:24
you gotta go. Oh, sorry. It's Sorry, sorry. Do you not know how you're supposed to speak? Not really. No, I think the pronunciation of your name has messed up your Canadian accent,
Adalia 6:37
probably, yeah, so
Scott Benner 6:38
how does it sound when your mom says your name,
Adalia 6:40
like, Adalia, I don't know. Oh, Jesus, really so boring.
Scott Benner 6:44
Oh, my God, never mind. Don't you live, like, near a strip club in the Yukon or anything like that. Usually, my Canadians have good stuff. What's going on?
Adalia 6:53
No, we don't really live anywhere. Like, super exciting we so I live, I will say I live in Ottawa, which is the capital of Canada, but everyone doesn't realize that it's the capital of Canada. Is that West kind of just boring? No, it's east. It's like, Central East.
Scott Benner 7:08
Okay? And you're supposed to say Odawa, like, I don't understand you. Like, it's like, you don't even live there.
Adalia 7:15
Well, oh my god, you said Toronto. Like, I don't pronounce the T in Toronto. You're supposed
Scott Benner 7:19
to say Toronto. Listen, I've been learning a lot about Canada over the years. It's Toronto, odo, oh yeah. And now you're just like, it's Toronto. Like, oh my God. All right, that's fine. We're gonna skip the Canadian part. You obviously don't own a penguin so
Adalia 7:32
well, I don't know who you're learning Canadian from, but I don't think it's right. Everyone that comes on the podcast, it's Toronto. You don't pronounce you don't pronounce it. It's not Toronto. God, I
Scott Benner 7:42
just want to put this out here. If you speak like you're from Idaho and you live in Canada, don't bother trying to come on the podcast. It's a freaking bummer and a half. So all right, we're just gonna get past it, I guess, and talking about your life. But jeez, Way to ruin things. Why would you settle for changing your CGM every few weeks when you can have 365 days of reliable glucose data. Today's episode is sponsored by the Eversense 365 it is the only CGM with a tiny sensor that lasts a full year sitting comfortably under your skin with no more frequent sensor changes and essentially no compression lows. For one year, you'll get your CGM data in real time on your phone, smartwatch, Android or iOS, even an Apple Watch, predictive high and low alerts let you know where your glucose is headed before it gets there. So there's no surprises, just confidence, and you can instantly share that data with your healthcare provider or your family, you're going to get one year of reliable data without all those sensor changes. That's the Eversense 365, gentle on your skin, strong for your life. One sensor a year that gives you one less thing to worry about, head now to Eversense, cgm.com/juicebox, to get started. What do you remember about your diagnosis? How did it come on? I
Adalia 9:03
remember a decent bit. So I was, it was February, so it's cold, and I remember in like, January, I had gone in to get a medical exam because I was working towards getting my pilot's license. So I had to get, like, it's called a Canadian aviation medical exam, and in it, they do test urine for ketones and sugars and stuff. And so I remember getting this, this test and being like, oh, like, that's kind of a silly thing for them to be testing for. Like, there's no way I had that, like, whatever at the time in January, I didn't, but then a month later, I'd gotten pretty sick. Yeah, we weren't really sure it was going on. I kind of, like, I'm the type of person where, if I'm not feeling well, kind of just tough through it, I'm like, it'll be gone in a bit. Like, it's fine. So I was, like, going to school and like, doing all these things, but I was just so tired, so thirsty all the time. Like, I remember being at my job and, like, literally, like, had forgotten my water. Bottle, and just was searching everywhere I could for like, something to drink, like I was so thirsty, and like, sometimes getting up in the night to, like, go to the bathroom and whatever, kind of all the typical signs that kind of point towards type one. Yeah, so kind of just like, not really sure what's going on. There's always like, there's always the fear, like, oh, it could be covid. Because whatever, we weren't really right. We weren't sure. So
Scott Benner 10:23
everything was almost covid, by the way, during covid, exactly, yeah, right,
Adalia 10:29
yeah. We just, like, had no idea. And obviously, with no type one in the family, we weren't like, that wasn't on our radar at all. And so finally got to a point where my mom was like, okay, like, something's not right, if you're still not feeling well, and you're actually coming to me and complaining about it, because I usually am just, like, whatever, like, I'm fine. And so she's like, we'll go get you covid tested and get a strep test, which I'd get within like, five minutes of each other, which I don't recommend. That was very
Scott Benner 10:57
awful. Wait, what's the strep test? I forget that. What that is they stick it
Adalia 11:01
into your like, tonsils and like, swab your like, swab your like, uvular you're taught, like, back of your throat, and
Scott Benner 11:09
it's just Oh, and then, and then the covid was up the nose at that point, right? Yeah.
Adalia 11:14
So, oh man, I just felt, I felt very violated, if I'm being honest. I was like, Oh, I don't like this, yeah. So at that point I was just like, I wasn't really. I kind of stopped being, like, having enough energy to go to school. So I was kind of like, whatever. And then we got the results back from those tests, and they were both negatives. We're like, Oh, this is like, something else going on. My mom's like, we'll wait a little bit and see. And then it came to that, like, weekend, and I think it was like, Friday night and I went to my mom's room. I was like, Mom, like, I'm not well. Like, I don't feel well. I think she's told me now that, like, that night, she was, like, very, very concerned. She's like, something's not right. But we didn't go in that night. We waited till the next morning and went into the Children's Hospital because I was still young enough to do, to go there. I mean, it was a pretty short wait, like, we went in, obviously, like I said earlier, thinking that I might have mono or just anything except type one was on our minds, right? Yeah, we go in and got triaged pretty quickly, and then we're waiting in a room for a while, and I remember falling asleep in like, one of kind of, like the still, the ER, like, rooms, but we're at least not in, like, the waiting room. And I'd fallen asleep because I was just so tired and and then they came in to take my to do blood tests and start an IV, because they're like, we're gonna get you some fluids and whatever. And they could not get a line in. I was so dehydrated that my veins just were not, like, there at all. And so they grabbed, like they had a special kind of, like ultrasound machine for your veins to, like, try to find them, I guess. And so they grabbed that they had, like, two, three people working on me trying to get a line in. And it was just like I was a little Pincushion. I was just lying there. Like, okay, like, please just get something in. I'd
Scott Benner 13:04
like to go back to the swab in my nose, please. Yeah, yeah, yeah.
Adalia 13:08
So I just, oh, man, it was quite painful. And eventually they did get one in my arm. And so they'd taken some blood out, and then started a line of fluids. And then, like, I think I'd fallen asleep again or something. And then they came back. And when they came back, that was when they were like, okay, yeah, like, it's type one. And I had no idea what that meant. My mom's a nurse, so she had, like, somewhat of an idea, but like a textbook idea, right where it's like, don't know really what it means, but you kind of are like, okay, like, got, like, pancreas, insulin, all this stuff. And so I was kind of like, just a little stunned. And then, like, anyway, then eventually we did. I did get admitted, and I remember lying in that room, and then my line had burst in my arm, and so my arm just flew, like, filled up with fluid. And that was like, oh man. But then that meant that they had to go in again to try to get something else in.
Scott Benner 14:01
Did they did the vein burst or the no where they put them? Just like, came out. Oh, okay. And it pumped your and it pumped your arm full of fluid, yeah? Oh, good times, okay, yeah.
Adalia 14:12
Great times. I had a balloon arm, and I, like, couldn't lift it and, like, whatever. And I just, I had people coming in and out of the room, kind of like explaining different things to me and whatever, like a lot of that, I don't really remember what people said, but I do remember like people are coming in and out, and then eventually, not like current endocrinologist, but the endocrinologist that I had, basically, up until I turned 18, came into the room and we chatted. And at the time I had, I'd been really hoping to go get my pilot's license, and end goal was become an astronaut. And I remember sitting that lying in that bed, and the endocrinologist came in, and she was like, oh, like, just like, making conversation, and we were chatting, and she's like, so there's very few people, very few things that, like type ones, can't do. And then she asked me what I wanted to do. And I was like. I want to be an astronaut. And she's like, Oh, well, that's one of the things. And so that was just a really, like, devastating, like, having to process that at the same time is like, oh, like, I now have this, like, lifelong yeah thing,
Scott Benner 15:13
hey, and so Natalie, if it makes you feel better, I don't think Canada has spaceships. You're fine. You weren't ever, you weren't ever going to be able to do that anyway. No. I mean, listen, because everything there is made out of ice, and so when the rocket went off, it would melt. So you could never do that. But that's a nice dream to have. And if you came here to America, we have spaceships and stuff, but you don't have it, so it's
Adalia 15:37
okay. I would have fit in, though, right? Like with my accent,
Scott Benner 15:39
no one would have known you would have what they call pass. You know, pass, yeah, yeah. Wait, was it surprising to you at any point that your mom, who was a nurse, didn't seem to know much about it? And did that make you worried? It
Adalia 15:50
didn't make me super worried, because she didn't, she didn't present that she didn't really know a lot about it, like she was pretty good about like she would ask questions, like for me, which I appreciated, because I obviously was, like, I'm not mistake to, like, ask any questions, or, like, whatever. I was kind of just trying to process everything, okay, but like, I think she did have like, a decent knowledge of it, but like, there's just, like, I think when it came to the management of it, like, She obviously didn't know, like, had no context for that. But yeah, like, it didn't really freak me out that she didn't know, because I didn't realize that she didn't know. Okay, okay. But anyway, so sitting in sitting
Scott Benner 16:28
they broke your dreams about being an astronaut. Then what happened? I'm sorry if I'm
Adalia 16:33
being honest, I don't really remember a whole lot. I got moved at some point. They were still taking blood and stuff out. They eventually got another line in over the night. Though, like, I remember, like, sleeping, not Well, obviously, but the nurse that was doing all my night draws for my blood was just it was so painful. I don't know what it was, but, like, I just remember waking up every single time, and it was not a pleasant experience. And then finally, came to the morning, and they decided to scrap those lines. And then, because my arms were so, like, prodded at, they ended up taking my final blood draw out of my leg, because they're just, like, we can't get any other, like, good real estate, really, right? They'd like, tried everything. Like, they'd put wet, warm diapers on my hands to try to, like, I don't know, like, make you warm up the veins. Oh, okay, so no, like to get the veins going. So there's a picture of me with like, these diapers wrapped around my hands that they look like boxing gloves. Who took
Scott Benner 17:35
that picture of you? My mom did. A person who does not care about you. That's what that is, yeah. Okay, 50 and you're 15 years old. Yeah. All right, after they get you stable and they get your blood sugar to come down, how long does it take them to do that? Not
Adalia 17:51
too long. So by the morning, I was pretty stable, and I was off, like the IV like, fluids and insulin and stuff. And then for breakfast, I got my first insulin injection, okay, which was like, I think the nurse, like the actual nurse was like, a little like, okay. But my mom was like, no, like, I'll do it, which I was kind of glad for, like, it made me a little more comfortable. Yeah. So breakfast, I had my first insulin injection. And then after breakfast, had educators come into the room and, like, teach about, like carb counting and pre bolusing and like, all these, like, all the kind of, like basics I got, like, a binder with all this information they gave me my like insulin pens and information about, like, CGMS and stuff like that. Were
Scott Benner 18:43
your siblings, maple, Timbit and ulu there? Or were they, like, did the Oh, you couldn't. It was covid, right? I
Adalia 18:50
didn't have them in there. So my dad ended up coming that morning for all that education stuff. So my dad was able to come in, but my siblings weren't okay, yeah, nobody was really allowed to, like, visit, but I was only there for one night
Scott Benner 19:03
trying to get you out of there because of covid too. Yeah, yeah. So
Adalia 19:07
I was in for one night, and then I left at lunchtime the next day. So we went in, like, morning of Saturday, and then I was out by Sunday at lunchtime. So okay,
Scott Benner 19:19
and off on your new adventure. Yep, was this during and so school wasn't happening either. So you were, like, you were was
Adalia 19:27
for me. So I went to a smaller a smaller school a little bit further from where we live. And so we, like, stuck to, like, semesters. We didn't switch to quad masters or anything during the pandemic. And for at that point, we were in person, I think, and so I had missed about a week before, and then the next week I when I was home, we then had a bunch of zoom education meetings. So we met with, like, nurse educators, nutrition, all these different like my endocrinologist, like every. One. We basically had meetings every single day to, like, be taught how to manage and different things like that. So
Scott Benner 20:05
what insulin did they start you on? I was on Nova rapid and Lantis. What do you use now?
Adalia 20:11
Right now, I use Nova rapid in OmniPod. OmniPod dash in
Scott Benner 20:16
a dash, okay, and you have a CGM or No, I
Adalia 20:19
do so at diagnosis, I got a FreeStyle Libre, okay? And partially because we didn't have insurance, we didn't have medical coverage. And so that was the one covered by the Canadian government at the time. Yeah, so I was on the FreeStyle Libre, like the one, and then when the two came out, I got put on that, which I was grateful for, just to have some more alarms. And so I was on that, actually, just up until two months ago, when I switched to the Dexcom g6
Scott Benner 20:46
okay, this, uh, Ottawa. What province is it in Ontario? Ontario, right? So that's where you want to go get diagnosed everybody, because she got a CGM and modern insulin in Canada. That's pretty impressive. Yes, yeah. Okay. Do you think that was because of your age or because of the province and what they do? I
Adalia 21:05
think it's a province of what we do. Like, I haven't heard of anyone
Scott Benner 21:09
like, regular mph or anything like that. Okay,
Adalia 21:12
I've never heard of anyone be put on that.
Scott Benner 21:14
So my next question is this, we're gonna fast forward, jump around a little bit, okay? I am generally baffled when a person your age wants to come on the podcast, really, yeah. So how did you find it? Why did you find it? Why did you want to come on?
Adalia 21:30
My mom actually found it, and she sent me the episode you recorded with April Blackwell, the NASA engineer. Ah, that makes sense, yeah. So she sent me that probably, like, two, three days after being home. I listened to it, and I was like, oh my goodness, this is, like, incredible. Like, it was just really great to, like, hear stories from, like, people who, obviously, I was like, I didn't know anyone who also had type one. And so just to hear stories from other people, and also, like, learn how to better manage it. Like I, I love information. I love information seeking. And so I was like, Okay, perfect. Like, new strategies, different ways to, like, do things. And so at the time, I was working for a beekeeper, and so I was one of his, like, only employees, and would just work. Thank
Scott Benner 22:19
you. For finally saying something Canadian. I appreciate that. Go ahead. Keep going.
Adalia 22:26
Yeah. So I basically, I would just then stick my earbuds in and listen to the podcast while I worked, because I was the only one who I was the only one there, and so I didn't have to worry about, like, other people, like having to talk with other people. So I could just stick my earbuds in and I just listened to, like, a bunch of episodes of podcast. I would seek out the ones with people my age, because I don't know, it was just something different to have people who also were kind of in a similar stage of life. Like, it's one thing to hear from, like someone who has type one themselves and is, like, 30 or whatever, but then to hear from, like a parent, then it's like, okay, like, okay. Like, it gives me a little bit of perspective on, like, maybe how my parents feel. But like, then to hear someone like, my age, who has gone through it, then I'm like, okay, like, this is really, like, feels very personable. And so that's kind of why I wanted to come on. Because I was like, Well, nice. I loved hearing other people's stories, and so I'd love to share mine. Not that it's, like, super exciting, but like, at least there's maybe a bit more of a young adult presence in the podcast and whatever. So if you
Scott Benner 23:26
think it would make you more like relaxed, I could like, play the sound of buzzing bees in the background while you and I are speaking. Oh, it's okay. Please just tell me for a second, what does a beekeeper need to hire help for? What do you do for them? So
Adalia 23:39
I did a lot of his production. So I would, you squeeze
Scott Benner 23:42
the bees till the honey comes. I don't understand. What does that mean? Yeah,
Adalia 23:46
so the honey would already be extracted. We made like different flavors of honey, so we'd add different things to it, like lemon or cinnamon or like chocolate, like we'd make different flavors. So I made that, and then I would we also made like beeswax candles. So I'd make a lot of his beeswax candles, and then he would sell his products at farmers markets. So I would go and work at the farmers markets and stuff. So how about
Scott Benner 24:07
that? That's a living. You can, like, stay alive, doing that, pay bills somewhat. Yeah. I
Adalia 24:12
mean, I was 15, so my high school job, I
Scott Benner 24:15
meant him, but he, yeah, yeah. He was actually, it's
Adalia 24:19
kind of beekeeping becomes more of a like, retired people's hobby, I see. And so that he was like, 86 and so his like,
Scott Benner 24:28
yeah, geez, I'm gonna try cinnamon honey, 86 that's not bad, Yep, yeah. Okay, all right, so you were doing that. That's nice. Do they pay you in loonies? Or how do you get paid? Yeah, loonies and two knees only. That's what I would figure because of the silly names, yeah, damn, yeah. And then how do you get to the job?
Adalia 24:48
He's our neighbor down the road, so you could walk, yeah, yeah.
Scott Benner 24:52
Do you wear snow shoes to get there? Or is that not necessary? I
Adalia 24:55
mean, it depends on the time of year, but Ah, see, no. It was usually. Own
Scott Benner 25:00
snowshoes. We do own snowshoes. Yep, people think I'm kidding, but I know what's happening. Yep, snowshoes. We
Adalia 25:06
don't use them on our street, necessarily. We do live in a suburb, but yeah,
Scott Benner 25:10
where the roads get plowed? Are you making the little quote fingers when you say suburb? Like, what does that mean? Like, there's a tree near you? Or what are you saying a suburb,
Adalia 25:21
I'll tell you my my view right now is a tree. I know a house. Oh, our car, our garbage bins. It's garbage day. I don't know
Scott Benner 25:30
cars, a tractor, though, right? Be honest, it's not a real car. It's a like a pickup from the 70s. Yeah, sure. You know fun at all. Okay, that's fine. Whatever. So upsetting. Like, you started off with the name, and I'm like, Oh, this is going to be great. And then nothing else was weird. Now, one other thing was weird, you're like, Oh, I had a nice after school job working for a beekeeper. I'm like, yeah, just casually, yeah, it's fine. You know, I went to school for math, millionly. What are you going to do in what they call University? Undecided.
Adalia 26:03
So I've just come out of a gap year where I was in New Zealand for six months, and then I'm going into another gap year.
Scott Benner 26:17
All right there. What do people call you like, add or add a or like, give a nickname.
Adalia 26:23
I don't actually, okay, all right. I do kind of just make people call me my full name. Nobody
Scott Benner 26:28
calls you. Leah, nope. What would happen if it happened? Would you be pissed? You think maybe a little bit. You correct them. Okay, all right, okay, I hear you. It doesn't matter. Um, it makes me think of that song, Cecilia, okay, you know that song? I
Adalia 26:43
don't think I know the song, but a lot of people do reference Cecilia and Adelaide when I tell them my name, yeah, because of
Scott Benner 26:49
it's the song. It's not the name. It's, first of all, it's Simon and Garfunkel. Do you have any idea who that is? I do know who that is. Okay, okay, so Cecilia and then it's Adelie. I think it just, it's musical like that. I can't sing, so it's hard for me to replicate it, but you get what I'm saying. Isn't it weird that I have, like, such a nice, deep voice, but I can't sing. That's a little disappointing. It is. I've been disappointed by it in the past. Oh no, I can't skip to this because I have to ask you, what do you mean? You took a gap year and you went to New Zealand,
Adalia 27:18
kind of just that. So I, I I left in September, end of September, I did go to I went to Australia for two weeks and visited some friends that I knew. And then I went to New Zealand for a three month like outdoor Ed adventure experiential learning program. Was supposed to come home after that, and then decided not, I'm going to stay so I went back to Australia for Christmas, stayed with my friends there, and then came back to New Zealand, and kind of just like lived and existed in New Zealand for three months, and then I came home at the beginning of April.
Scott Benner 27:50
Listen, are your parents rich, or was somebody grooming you to human traffic? You what was going on? Exactly, no, I
Adalia 27:57
actually paid for all of it myself with the B money. Yeah. I mean, I also lifeguarded, so I had two jobs. Were you stealing from
Scott Benner 28:04
that old man? Be honest? Is that what? You know, how much is it? How much this is not in my business. But, I mean, that's ridiculous. It's a podcast. I ask people things constantly that are none of my business. How much does it cost to go on a trip for a gap year? Like, how much did you spend the whole time? So, like, say it in real money, so we understand, like, American dollars. Go ahead, I don't
Adalia 28:24
know American dollars, American Canadian dollars aren't that different. But my plane tickets were about 2000 each way, so that's already like four grand. And then the tuition at the school was, like, pretty typical to like, a, like, university tuition. So it was like seven grand. How many second beans
Scott Benner 28:45
did that guy have? What were you doing? For Jesus, yo, he wasn't taking pictures of your feet or something while you were doing this work, right? Nothing. Okay, all right, okay. Wow, you're like, you're a little like, adult,
Adalia 29:00
yeah, I tried it.
Scott Benner 29:01
No kidding. You're like, you know, I just took my $900,000 that I saved, like helping the bees and went on a world tour. Like, do you curse Adalia? Do I? Yeah,
Adalia 29:14
I don't know, but
Scott Benner 29:16
what you're the worst Canadian? Have you ever stabbed anybody? No. Oh my God. What a mess. Okay, all right, hold on a second. You people run into someone if I snowboard, but heck, yeah. Okay, that just sounds like a I don't know what generation you're from. I don't, I don't keep track of that. What is your generation called? You know, I have no idea. I was gonna say you don't know. You're busy off scrolling away, 30,000 loonies or whatever. The hell. Holy, seriously. Okay, you're freaking me out. Okay, so you see, you did this whole thing. What did you do? It for personal enrichment to get away because you didn't know what to do in university. Like, what was the onus personal
Adalia 29:53
enrichment? I think New Zealand's always been like a bucket list destination, and then this program was kind of like exactly what I was. Looking for because I was like, I don't know what I want to do for university. And then, at first, it appealed to me because it was only a semester long. So I was like, Okay, perfect. I can do a semester in New Zealand, come home and then work for another semester. Spoiler alert, I ended up doing, like, seven months there, but it was like, it was personal enrichment. And then I stayed because I met really awesome people and had great opportunities to just do a bunch of volunteering. I had an older couple that I'd met offer for me to live with them. So I lived with an older couple. I
Scott Benner 30:27
see what happened? You became a concubine. Sure you don't even know what that means. You do. What is it? Wait a minute. I don't understand. Let's go backwards for a second. What's your IQ?
Adalia 30:39
I have no idea. You've
Scott Benner 30:40
never had your ID test this. No, you have the emotional intelligence of a 97 year old woman who has 53 kids. That's all so okay, you're never going to college. Well, no, I think I will when you're going to take another gap year. Where are you going now? Greenland, what's happening?
Adalia 30:59
I have no idea. It'll be interesting, because when this, like, releases, I'll probably be like, I don't know, in Europe or something working, or whatever. I have no idea. Wait,
Scott Benner 31:07
like, the astronaut things make it more sense now, because before, I just thought you were like a kid who was like your parents, like, what do you want to do Atala? And you're like, I want to go to space. But it's not like that. Like you have like, that wanderers, lost, yeah. Oh, yeah, oh, okay. All right. Oh, do you have a boyfriend? You don't. Do you? I don't, yeah, because they would just hold you back. Big, dumb boy everywhere you're trying to go, right? Yeah, exactly. You know, I'm seeing it now. Okay, all right, I get what's going on here. I'd like to set you up with my son's too old for you. We'll find somebody I care about and get you set up. Oh, you're perfect. I didn't realize. How did you become a perfect person? This is why God gave you diabetes. Because you were so perfect, they had to, like, make you dinged a little. Yeah, okay, no, no. How did you actually,
Adalia 31:54
like, thought that though? Because I'm like, I had no issues growing up. I literally, like, nothing.
Scott Benner 31:59
I just want to say when I say stupid, and people are like, That's ridiculous. I know what I'm talking about. I knew you thought that. Okay, all right, so we slow down. I'm too excited. Now hold on, give me a second. I'm figuring you out. It took me a half an hour to figure out, but it's because it's early in the morning, by the way, if it wasn't so early, I'd have figured this out 12 minutes ago. I just want everybody to know. Okay, so, all right, so you're, you have wanderlust, and you don't know what you want to do in college, because none of it seems attractive to you. Yes, okay, and you figured out you can make money, so you don't have any pressure to make money. Yeah, I
Adalia 32:36
mean, a little bit, but not really. Also, you're from
Scott Benner 32:38
Canada, so, like, how much do you need to live in Canada? Really? Like, got it, you know what? I mean, not a lot. It's well, well, you could just go to Saskatchewan if you needed to, and live there for like, I don't know whatever it costs to live there. I don't know anything about Canada. I want to be clear about that. I really don't know a goddamn thing about Canada. Well, the first time I realized there weren't penguins in Canada. I just played it off like I was being sarcastic.
Adalia 33:05
There are polar bears, I promise. Oh, I
Scott Benner 33:07
know there are. Don't you worry. I'm aware of everything that's happening. Do you know about the houses hippo? House hippo? Yeah. Oh, wait, let me try to think it through. Is that a muskrat? No, all right, I
Adalia 33:19
don't know what that is. It's a pet hippo. We just call them house hippos. Wait,
Scott Benner 33:22
people have hippopotamus in Canada. Are they like pygmies?
Adalia 33:27
They're like little mini, like little mini hippos.
Scott Benner 33:30
What is wrong with Canadians? This is ridiculous. The House hippo is a fictional creature from Canadian public service announcements that aired in the late 1990s look at you lying to me. You know, I believe that, right? Yeah, I don't care. God damn it, has become a beloved and memorable part of Canadian pop culture, and the PSA remains a nostalgic place for many Canadians. Well, I hope you know Adalia that you just named your episode house hippo. So good job. Okay, so you don't have a plan. Your plan is, what grab life by the balls and see where it goes. Yeah, kinda Okay. Well, it's gonna run. If you squeeze hard enough, it'll run around. So there you go. Oh yeah, you'll be all set. Wow, okay, and your parents are cool with this. Yep, yeah.
Adalia 34:15
I mean, like it was actually so I, I have dual citizenship, so I have a Dutch passport, so it's very easy for it would be very easy for me to, like, go over to Europe and work without having to, like, apply for visas, right? And it's actually like my dad who suggested that. And I was like, Oh, I thought you wanted me home now, since I've been gone for so long, yeah, he's like,
Scott Benner 34:36
You got to get the hell out of here. Your mom and I have been having way more sex than you left. So get the out of here. How do you get dual citizenship? Three
Adalia 34:44
of my four grandparents are immigrants from Holland, and because my dad's mom had kept hers, he was able to get his. And then you only need one parent to have theirs in order for you to get you. Ours. Okay? So then me and my two older siblings, we all have ours. Have you been there?
Scott Benner 35:04
I haven't. I've actually never been interesting. Do you own wood shoes? We do, yes. Have you ever worn the wood shoes on the snow shoes in Canada? I can't say I've done that. No. Then how adventurous, very uncomfortable. You're not as adventurous as I thought you were, then never mind. Okay, so now it makes sense why you're on the podcast. Because basically you're like 36 in your head, sure. Well, now do you not think that? Don't agree with me if I'm wrong.
Adalia 35:32
No, I do. I just think it's funny that other people think that sometimes
Scott Benner 35:36
you understand sarcasm, which is a very un Canadian thing, really? Yeah, what do you mean? Really? Do you not live near Canadians?
Adalia 35:45
I do, but I've been away for so long, I don't know. And you're
Scott Benner 35:49
just gonna go again, and you don't even know where, and that's not even important. It's just that you're going that's important. Yeah. Okay, so now I have to listen to all the people who I can hear screaming in my ear who are listening to this. I'm like, Scott, talk about how she manages her diabetes while she's obviously really well. First of all, where's your a 1c, what's your variability? Like, tell me about that.
Adalia 36:08
Yeah, so I was on MDI for a year and a half after my diagnosis. Because of where I was, you have to wait a year before you can go on a pump, and then the pump waiting list is really long. So after a year and a half, I got put on the OmniPod. And while I was on MDI, my ANC was 5.1 okay, like between 5.1 5.4 and then I got put on the OmniPod in June of 2022, and was on that for a year and a bit. And my ANC, I think it hopped up to, like, the high fives, just because I wasn't actually really using it in terms of, like, entering carbs and, like, having all my carb ratios. I just was like, this looks like it's five units. This looks like it's three units. This looks like it's 2.5 units. So that I was kind of using it the same way I used MDI. And so it was great to have more basal control. But my ANC did hop up a little bit to, like the high fives, low sixes. And then when I went to New Zealand, I actually switched back to MDI, and you're doing a five
Scott Benner 37:16
on MDI. Yeah, you have an eating style that's specific.
Adalia 37:21
No, not really eat whatever.
Scott Benner 37:25
Oh, my God, wait a minute. Is this the moment? Did I teach you how to do this? Yeah? Oh, I didn't know this was gonna happen. Oh, excellent. Oh, oh, hold on. A second. Give me a second. I feel good about this. I've allowed you to travel the world and keep a five, a, 1c, yeah. Oh, my fucking hero. Oh, okay. All right. All right. This is good. Okay, okay. All right. How did I teach you that? What did you learn that in the podcast that helped you do that?
Adalia 37:50
A lot of it, like, I don't think there's anything like specific it was just like hearing how other people did it, like, like the Pro Tip series and all that incredible. And I listened to a few of them. But like, when I was just thrown with, like, all this information, I was like, okay, like, this is great, but, like, how do I do it? I would just pick and choose different things from different people's like interviews and like, someone would say, Oh, I do this, or oh I do this, or oh I do this. And I'd just be like, Oh, let me try that. Let me try that. And so I kind of just pick and chose from all the different, like strategies that different people used, and then it ended up working. Like, granted, I was taking like, maybe, like 12 injections a day. It was like kind of crazy, like they recommend what, like one per meal, plus like one in between. But I was probably taking like 12 to 14 injections a day. Oh,
Scott Benner 38:37
my God, I know why you like the podcast, why you and I think similarly, right? I yeah, I think so, oh, my God, you're like my daughter, except like, from Canada, and not really from Canada, more like the Netherlands. But you understand what I'm saying. Okay, all right. Oh, this is super interesting. You don't want to go to college. Well, I
Adalia 38:58
think I do. Though. I just like, I don't know what for. I don't know I had applied, like, last fall. I'd applied to go for like, this September, but you're not doing it. No, I'm not. I didn't know what I wanted to do, so I applied to like, six different programs. Like, I had no clue what I wanted to study.
Scott Benner 39:15
Finish this sentence, I would choose a college direction. But I'm afraid that if I picked one, then I'd be locked in. Yeah, when I think about doing the same thing every day for the rest of my life, it sounds like torture. Oh, my God, you and I are the same person. Oh, this is so crazy. Okay, all right, hold on a second. You would have never made it through the astronaut thing. No, no, no, it would have been too specific, yeah. Oh, your IQ is in the 130s you should get it tested. Okay. Oh, no, no, seriously, I got you. Oh, okay, hold on a second. I'm not telling anybody my IQ, but I. Ah, but here's yours. No, I'm not telling you mine. It would embarrass me, because I don't understand anything, so it makes it seem like I'm lying, like I don't, like, you know algebra, yeah, I don't. Oh, my god, yeah. Oh, you have the thing. Are you thinking all the time? Yeah, right. Do you have like, these great ideas when you're in the shower sometimes? Okay, most of the podcast I dream up while I'm taking a hot shower. I Yeah, that's fair. Do you need to write anything down, or do you just work out of your head? I
Adalia 40:35
used to work out of my head, but now I need to write things down. I can't just, like, I'll remember something, and then be like, oh, I need to write that down. And then 10 minutes later, be like, What did I say? I need to write down. Like, okay, I there's just now so much in my head that I'm like, Okay, I do have to write things down. When
Scott Benner 40:52
you decided you were going to New Zealand, did you do much like, I mean, you knew where you were going and you were gonna stay with friends and everything, but did you think about it much past that?
Adalia 41:00
No, I was like, I'll just go, like, yeah, yeah. I like, thought out all the details. I was like, Okay, well, I'll make sure I know, like, how I'm gonna get here, and like, all these, like, book a bus and, like, do all that stuff, like, all the like, logistical things, like, okay, making sure that I'm not, like, stranded on the side of the road. Other than that. I was like, well, let's just see where it takes me.
Scott Benner 41:18
The things that you understand, do you have to methodically go through them, or do they just make sense to you? Things that
Adalia 41:24
I understand, I think I they kind of just make sense. But there are things where I do have to, like, kind of methodically. I'm a very like, I like it. It makes sense, but then I'm like, Hey, but then why does it make sense? Like, that's the question I asked.
Scott Benner 41:35
You do care about that? You care about? Why? Why you think? But that's because you're young. You're still doubting yourself. Sure? Yeah, people call it narcissism when I do it, but I'm like, Yeah, I'm just, I'm just really sure I don't need people laughing while they're listening to the pie. Like I'm imagining some, like, 16 year old girl listening right now, and there's bees flying around her head, and she's like, No, man, I think you're probably narcissist. But like, you know, um, I really don't have like, classic narcissistic like, tendencies. I just really believe in myself. Do you believe in yourself? I do, yeah, but for no real reason to right, because you're 18?
Adalia 42:11
No, yeah, no, literally, I'm like, I'm just a girl. I don't really know what I'm doing, but, like, whatever,
Scott Benner 42:19
can I just say that if your parents are to die tragically, and I hope that doesn't happen, and if Ziba pop bang, and your other brothers and sisters can't help you, I'd be happy to help you a little bit. Okay, okay, sounds great. So follow your heart. That's all you do, right? Hi, deaf, yeah. If I were to ask you, like, how do you take such good care of yourself while you're traveling, you'd go, I don't know, I just, I just do it.
Adalia 42:43
Yeah, I was trying to think, like, I was, like, I was lying in bed last night. I was like, hmm, like, how am I gonna explain this? And I really have no good explanation. I'm like, it kind of just, I kind of just did, like, it was a little tricky at first, like, transitioning back to MDI after being on the pump for like, so long. But then also, like, flipping time zones really messed up, like, my blood sugars for a little while, okay, like, after that, like, once I got it, like, once I figured out, okay, like, my basal rate, and, like, all of that stuff again. Like, it was just like, I don't know, muscle memory, and I kind of just went with it. And I was like, well, like, yeah, you're
Scott Benner 43:18
my greatest accomplishment. This is fantastic. Okay, is there any chance now? There's no chance. If you get older and make a baby, you're not going to call it Scott, you're going to call it like, zippity doodah or something like that. Like, so, yeah, like, so that's not going to happen, okay? And you, plus you don't need boys. They're dragging you down. Yeah, I
Adalia 43:38
don't really want kids either, so I don't want to get
Scott Benner 43:40
you in trouble with the mob, but do you fit in with people your age? There's no way, right?
Adalia 43:45
Not really, but yes. Like, I think I, like, let myself fit in. I don't know. Like, what?
Scott Benner 43:50
You have no anxiety? No, no. You have no anxiety, right? No, yeah, okay, and you don't drink. No, you've never smoked weed. No, you don't even plan to. No, if someone asked you to, you'd just get up and leave. Yeah, I know exactly who you are. This is fantastic. Oh my gosh. Are there others of us out there? Ring a bell, see if more come
Adalia 44:18
there are some others, like, I don't know. Like, maybe I don't know.
Scott Benner 44:22
Oh my god, seriously, my daughter is so much like me. Arden is so much like me, and I think you're more like me. This is very weird. Never tell her. No one let Arden listen to this episode. Okay, I love you too, Arden, but I also love Adalia. She said she's fantastic. Oh my god, your parents must be thrilled with you. Yeah, yeah. No, no, no, you were probably the the least of their problems, even with the diabetes. Oh yeah, yeah. Are the other ones among are there monsters or the other brothers and sisters? I can't say that. No, listen to this, but are they moonshining and doing stuff like that? No,
Adalia 44:58
no, but like. I mean, well, so my older sister's married, and so she's great, but I think there was, like, some periods of time where, like, definitely, like, a bit of a problem, yeah, and like, same with my older brother, and then my younger brother's 14, so he's just started high school.
Scott Benner 45:14
Oh, we don't know what's happened to him yet. Yeah. So who knows, in high school, you weren't a great student, right? I was. You were like, A's, or is that how they marked them in the Canada A's, um, we
Adalia 45:27
usually do percentage marks, but like, I, I mean, I finished with, let me see what, um, look
Scott Benner 45:34
at how it matters to you. If the numbers right, just you did well, is that? Is that right? You're like, let me get my report cards. Hold on, I finished.
Adalia 45:43
I finished high school with an A average. Okay,
Scott Benner 45:45
okay, so you have, oh, my god, maybe it's because you're a girl, because I can't overcome the feeling that I don't want to be tied down by anything. Like, I can't overcome that. Like, if you try to tie me down to something, I'll, I'll say, I don't see the value in that. And then I walk away from it. I don't want to be and people are like, that's ADHD. It's not ADHD. I I am not wasting my time with something I know I can't do. Oh my god. Arden just started talking to me about school last night. She said all this to me. Oh my god, am I gonna have to let her do what she wants to do? I already paid so much money though, I don't know. Um, okay, all right, I'll have to think about that. Oh, my God, this is so interesting. Did you know this about yourself? Did you know we were like, like, brothers from another mother when you came on? Or did you not really,
Adalia 46:35
like, I think, like, I knew maybe that, like, we kind of thought, like, similarly. But then I'm like, okay, but then I'm like, okay, but do I just do that? Because I'm like, have I've just become a minion to the podcast.
Scott Benner 46:44
Hey, listen. If that's what's going on, I gotta say I'm down for building an army. You know what I mean? Like, yeah, yeah. Because I might transition this whole thing into a cold at the end if I need to pull some money together. You know what I mean, fair enough.
Adalia 46:58
Yeah, so. But no, I don't think I really, I don't think I really knew. Like, there were things that I was like, okay, like, this is a little interesting about myself, but, like, maybe I just didn't really have a way to describe it. Yeah, I don't know.
Scott Benner 47:10
Wow, you got rid of the hippo title. Good job. Now this episode's called mini Scott, or maybe mini Canadian Scott, Canadian mini we'll figure it out. This is lovely. Are you like your parents? I think so. Your dad has it a little bit, right?
Adalia 47:29
Yeah, my dad does. But like so my family's also riddled with ADHD, so it's
Scott Benner 47:36
like he said that you said that like you had mold in the bathroom, and we all know it's too cold in Canada for you to have mold. So, like, so what do you mean? Like,
Adalia 47:47
okay, so my dad and then my two older siblings all have, like, some sort of add ADHD. My dad is a very like. He is a very like. Think it through logical, like, methodical person. He does like software, programming and stuff and so, like, all of but then, like, he really likes the, like formulas and when it all works, and like, all of that stuff. And he's very smart. And then my mom is, like, a very, like, academic kind of person, like, so she had gotten a master's degree, had four kids, went back for nursing school, and then now is also getting a second master's degree. And so she just, like, she's never stopped learning, like she's always, like, trying to, like, gain new information. Your
Scott Benner 48:32
parents are methodical thinkers, yeah, but are you? I can be, but it's not your default, no, not really. If I describe to you that thinking about something to me was just telling myself a story in my head till my brain gave me the answer. Does that sound like something you understand? Yeah, so my son was explaining to me about being like a methodical thinker and going through things like line by line, almost like writing or reading code, right? But when I think about big ideas, I just think about the question until the answer arrives, but I don't step through it with any words or solid thoughts, yeah, I never know how to explain that to people. Like, I end up saying something flippant, like, No, I just know what the right answer is. But I don't really just know what the right answer is. I just think that while I'm thinking about it, the words aren't available to me. The answer is, yeah, this sounds ridiculous to people. Don't you think?
Adalia 49:34
I think it would like, it sounds ridiculous a little bit, but then I'm like, wait, but that's the exact same way that, like, I think as well sometimes where I'm like, well, it's clear. It's clearly not ridiculous, if we both think that way, like, so
Scott Benner 49:47
if you really listen hard to the podcast, I like that. It's just because you and I agree you're like, obviously it makes sense. If you really listen hard to the podcast, I make the most sense when I get revved up and I get going, yes, because. Words. I don't know where the words come from. Like you think, like you might think. Scott knows all this stuff. It's all written down in his mind. He's pulling from it because he knows that today he's gonna get on a an episode with Erica and talk about resilience. And he must know a bunch about resilience. I don't know anything about resilience. I don't know anything about people, how their brains work. I know none of it, but when you get my brain warm, and I literally mean warm, I warm up while I'm making the podcast, my body gets hot when I heat up and I start going, I don't know what I'm about to say next, and I always make sense, and I'm freaked out by it. If I'm being honest with you, I don't know how it happens, or where you can't just call it intelligence or like, people do that. They're like, Oh, it's a it's IQ, it's emotional intelligence is, I don't know what the fuck it is. I have absolutely no idea. I can't even quantify it. I just know that if you get me going, I will be entertaining, and I will make sense, and when I'm done, you'll go, That guy seems to know something. And I don't know where any of it comes from. But you know what I'm talking about, don't you?
Adalia 51:03
I do my issue. I think you have an advantage where, like, all your conversations are recorded, whereas, like, I have found, like, I'll be like, I do it when I'm driving. I'll like, start getting, like, really excited about a topic, or, like, my friends will bring something up, and I'll just start talking like, and I'll just, like, continue. And I'm like, I don't even know where these things are coming, where these ideas are coming from. Like, what? Like, whatever. But then at the end of the conversation, like, dang, I wish I could remember what I just said. Like,
Scott Benner 51:27
I have no idea what I've ever said. Like, that's like, that's why, like, I'll have there are people who help me, like, wonderful people who are like, group experts in the Facebook group and and Isabel, who's very, very like, if you enjoyed the last two years of the bowl beginning series, that's pretty much Isabelle. Was like, You need to have an episode about this and this and this, because this is what people are talking about. I'm like, okay, like, I never would have thought of it like that. I would have just That's why even, like, the Pro Tip series, I made it up, like I said, I sat down one day and I was like, what's important about diabetes? And I made a list, and then I sent the list to Jenny, and I go, Hey, I want to make a series about this. And she goes, Okay, would you mind if I put it in a better order? And I was like, I don't care. And she's like, she moves stuff around. She goes, that's the order. And I went, all right, whatever. That's fine with me. Like, like, that's and I was like, Okay. And then, have you listened to the Pro Tip series? I've listened
Adalia 52:19
to some of them. I can't say I've listened to all of it all the way through, but I've listened to bits and pieces, but it's
Scott Benner 52:24
helped you. Yeah, yeah, with of what you've listened to, of it, did it feel like haphazard or thrown together? Not at all. No. Do you know that every episode of that series started with me getting Jenny on, like I got you on, and saying, Hey Jenny, today I think I want to talk about this one. And she goes, Okay, and then I just start talking about it.
Adalia 52:45
Yeah, I did know that partially because maybe just mentioned it a couple times. I mentioned
Scott Benner 52:48
it because I'm freaked out by it. Even when I do public speaking, I don't know what I'm going to talk about. Yeah, I put slides up because the people who invite me out to speak seem to think it's important that I bring slides, but I don't need those good slides. I'm like, I'm like, I don't like, like, I just stand up there and I go, all right, diabetes. And I look at people, and I go, what do they need to know? And then I tell them. But if you ask me five seconds before that, what do people need to know about diabetes, I'd be like, I don't know. I gotta start talking about it to get it out. Oh, my God, I'm so upset. I'm upset for you, because you're gonna live your whole life like I had to, like, not knowing why you know something. Yeah, it's I really it does bother me. Sometimes Me
Adalia 53:31
too I yeah, I find sometimes I'm just, like, I really do wish I knew where this was coming from, or, like, what? Like, yeah, I don't know. Even in conversation with my parents sometimes, like, I was talking to my dad the other day about something, and then he's like, you're holding yourself better in this conversation and about this topic than, like, a lot of adults that I've talked to, and I'm like, it's not that difficult. Like, I feel bad for saying it, but like, it doesn't seem that difficult. People aren't going
Scott Benner 53:55
to believe this, but I feel bad for saying it too, like I really do because, because I don't feel like it's something I can actually take credit for. Yeah, it's not like I had to sit down and learn about a topic or something like that. Like, that's when I talk about common sense. I'm like, well, that's just obvious. And then I finally had somebody say to me one time, like, Scott, it's not obvious to everybody. And I went, Oh, okay. Like, I'm not mad at people for not having common sense, like having the answer's not like popping into their head or something like that, but I'm also older than you significantly. Like, I'm like, I'm 30 years older than you, aren't I 32 years older than you? 34 years Hold on a second, 2838 48 and then 4950 I am. I am 34 years older than you. I can look back and tell you that the things I decide to do, generally speaking, go, Well, yeah, that's all I know. People in my life come to me for advice all the time, and it's been happening since I was in my 20s. Like people will come to me and say, What would you do in this situation? And I go do this, and they're like, Okay. Okay, and then they just do it, like the tug of war thing, about the pre bolus thing. I made that up on the spot. I had never thought of it once in my life, and it just popped into my head. And then I just said it out loud. And then the girl was like, Okay, I understand. Thank you. And I was like, Okay. And then I said on the podcast, and then Jenny came to me one day and goes, that's the clearest explanation of pre bolusing I've ever heard in my life. And I was like, Really, I made it up on a phone call. Yeah?
Adalia 55:23
Well, it's because you didn't think about it. I feel like when you do think about those kinds of things, sometimes it just becomes so jumbled and like, so many words are used. And it's like, really, when you don't think about something like it comes out in the simplest form for you and me.
Scott Benner 55:37
Yeah, right. Because I don't know. Why isn't that interesting? Very interesting. This has been a lovely self reflection conversation so far. Okay, see, because I got I figured out, like, 25 minutes ago, if I asked you about your diabetes management, you're not going to know what to tell me. Yes, yeah, no. Arden's the same way, like people are like, have Arden come on to talk about she takes care of her diabetes. I'm like, she doesn't know. She just does what makes sense to her after what I told her was important. Yeah, I don't know, because my endocrinologist
Adalia 56:08
hate it, maybe, but it's okay. Yeah, we don't care what they think.
Scott Benner 56:15
Can you imagine you have an A, 1c, in the fives, and your endocrinologist has anything bad to say about you at all? You'd be like, listen, they couldn't do better for you. No, no, not at all. Do you have any plans on having children? No, I didn't think so. Okay. Do you date, like, casually? No, bump into guys in bars and you know what I mean, like, just that
Adalia 56:39
kind of thing I did. Like, I dated a guy for like, a year and a half, but like, I haven't since. It's
Scott Benner 56:45
insight time tell everybody why you don't date him anymore. There's a lot of reasons I know I want to hear what they are, because they're your reasons, and they're going to be very specific, and unlike other people's reasons. So go ahead.
Adalia 56:58
I just, I mean, one, I was not like me leaving was a reason, but I was just like, I couldn't predict, or like, I didn't know what to expect for when I went away. And then I was like, well, then clearly this isn't a secure relationship. And so, like, that's not good. Well, I mean other things,
Scott Benner 57:16
because the answer is, if my brain told me to keep dating him, I would be, yeah, but the reasons aren't important. You just knew it wasn't the right thing to do. Yeah, and you're happy. I'm very happy. I know I can hear it in your voice. That's crazy. When you got diabetes, did it phase you? No, not really. Did you have a plan? Or your brain just did the same thing. It just did the Well, now it's time to do this. Yeah, my
Adalia 57:43
brain was just like, Okay, well, perfect. Like, this is just something else I have to do. But, like, not in a negative like, oh, there's something else I have to do. It was just like, Okay, well, like, this is just another part of life now, like, relearn how to do it and then just move on.
Scott Benner 57:56
I thought I felt that way because I grew up hard. I thought it was, Oh, that's so interesting. Maybe it's just because, if I have you heard me describe that I wake up every day hopeful, like the whole world's reset.
Adalia 58:08
I don't think I've heard that. No, do
Scott Benner 58:10
you feel that way? Sometimes, I
Adalia 58:12
don't know if I've ever thought about it like that, but do you wake up
Scott Benner 58:14
in the morning and feel burdened by what happened yesterday? Or do you feel like new day start over Groundhog Day? Sometimes
Adalia 58:20
feel burdened, but I A lot of times just like,
Scott Benner 58:23
No, it's interesting. The worst thing in the world could happen to me, and I don't wake up the next day thinking about it, yeah, because I've already thought about it. I know what I know about it already. I don't need to think about it again. Yeah,
Adalia 58:37
it's not worth the brain space or energy. Sometimes,
Scott Benner 58:40
do you ever think about something to the end of your understanding of it and then spend time wondering what exists beyond your understanding? Yeah? Oh, God, really.
Unknown Speaker 58:54
Okay.
Adalia 58:56
Sometimes scary though. Yeah, to do that,
Scott Benner 58:59
I explain that to people, and they're like, I don't know what you're saying. That's saying. And I'm like, There's something beyond what I understand. What is it? And they're like, if you don't know what it is thinking about, it's not going to help you. And I was like, I know, but the but just by the way, a very accurate description of why it's a waste of time. But like, it's the wondering, what's there I'm waiting for my brain to fill it in. And sometimes it does, yeah,
Adalia 59:26
and sometimes there's like, well, though, like, the question of like, well, if I know up to this part, like, why don't I just know that much more,
Unknown Speaker 59:33
right? What's
Scott Benner 59:34
out there that I don't that's why you wanted to be an astronaut, yeah? Oh, boy, is this interesting. I'm so sorry. It took me a half an hour to figure all this out about you. But okay, I also want to say, let's be honest, there's very few people who would have drawn any of this out of you in one hour. I am. I'm almost amazing. Yeah, I'm quite impressed. Oh, you should be, everyone listening should be you should, right now, be going like I don't do enough to. Spread the word of this podcast to other people, like, if you're listening right now, you're letting me down. Just so you know, even if you're trying really hard, you're not trying hard enough. Because these are the kinds of, I'm just being sarcastic, but these are the kinds of, these are the conversations. La, when I get up in the morning and I think, why is my podcast not more popular? It's this episode, and episodes like this, where I think this has nothing to do with diabetes and everything to do with diabetes, and everyone should be listening to this. When I put out the after dark episode about the woman who went to prison, did you hear that?
Adalia 1:00:31
Oh, I It's on my list. I literally was gonna listen to it on my drive. I have to drive back to I'm working at camp right now, and I have to drive back to camp. It's like two hours. So I was literally gonna listen to it
Scott Benner 1:00:42
right after this. It's gonna shrink your balls to the size of raisins. Do you understand what I'm saying? Like, it's getting it's gonna throw you for a loop. But when it, when I actually listened back to it, because some I got so many notes the day it came out, I was like, Man, I should go listen to that. So, like, I put it on listen to myself, which is weird. I understand, yeah, but I got done, and I was like, that's a good podcast. Like, forget diabetes. That was a good podcast. And I got stuff out of that lady. Like, Wait, do you see and do you know the other night? Like, literally, it might have been two nights ago, she emailed me and she said, yeah, yeah. Hold on a second. Let me find it. Let me find it, everybody. Hold on a second. Chill out. If you're driving, keep looking at the road, stuff like that. If you're at the grocery store, now might be the time to figure out what kind of peanut butter you're gonna get. Hey, thank you again, Scott, for giving me the opportunity to share my story with you. It meant the world to me after we got done. This is a private note. I'm probably not supposed to be sharing this on anybody after we got done. I assume people know if they share something with me could end up online, right? Yeah, surely, yeah. Okay. After we got done, I cried happy tears. I felt like a part of my inner child was healed after years and years of negativity, given the chance to speak, to share my voice to so many living with a condition was not only an amazing experience, but healed so much inner trauma. I hope my story touches the lives of others, and I will continue to support your podcast. I talk about it all the time with my family and friends. If you ever want another jail story, don't hesitate. I've got plenty. How great is that? That's incredible, yeah? Like, I'm done for the rest of the day. I've already added to the world. If I don't do anything else today, I'm good, yeah? And after I had that recording with her, like I didn't know I did all that for her, like I didn't know the experience did that for her. And you can be like, Oh, Scott, you didn't do it. She just wanted to voice her. I made the thing where she could do it, like I did do it. The whole thing's my idea, but it's not really my idea. It's my brain's idea. And I'm not joking about that. When I was writing a blog and people stopped reading, I thought, I don't want to lose the ability to talk to people. And then my brain actually said to me, this is a quote from my brain. Katie Kirk said, You were good to talk. You were good at talking to people. You should start a podcast. Wow. And I only knew what a podcast was because of Kevin Smith. You must know Kevin's Jay and Silent Bob. I think so. Okay, so Kevin Smith had a, I don't know if he still runs. He had this great podcast called smodcast, and I loved it. I loved like, the way he he almost felt like he was rambling, but everything made sense, and there was no beginning, middle or end to what he was talking about. I enjoyed that, right? So I, I knew about podcasts because of Kevin Smith. I know about talking to people because of Howard Stern. Like, because I know these are names that mean nothing to you, but like, I like, I like morning radio, okay, like, so I like getting up in the morning and listening to people talk to each other, people who I feel like I know somewhat their story and who I like, the way they talk or think or feel or whatever, the way they the way they communicate, generally speaking. And so I was like, Oh, I'm gonna start a podcast. That was 10 years ago. And for years I made that podcast to nobody, like, seriously, like, three years in, it took me a year to get the amount of downloads I got this month. And, like, so I was doing it because I was like, this makes sense. Like, this is going to work. It's going to get bigger if I just do this, if I just do that. And like, people in my life will be like, you're too focused on this. And I'm like, no, the answer is out there somewhere about how to make this more valuable for people, how to make it so that more people can find it, and more people like this, person who sent me this email can have this feeling, I don't know the steps. And if you go to like the internet, or, you know, you go to chatgpt, and you ask it like, how do I make a successful podcast? Everything it tells you is useless. I believe that it's it's just the banal stuff that people say when you ask them questions about that. But none of it's real. It's not actually how you grow something like this. But if you ask me how to grow it, I have no idea. You wait. You wait till your brain tells you the right thing to do. Then you, does it sound like I'm boasting? I don't think so. No, because I don't mean it that way. Yeah, yeah. There's plenty of things I suck at. Yeah. Like, if
Adalia 1:05:15
someone didn't know that you didn't mean it in a boastful way, then maybe they could interpret it that way. But like, I don't know. I think you're it to me, it just sounds like you're kind of just explaining.
Scott Benner 1:05:24
I am just trying to explain how my brain works. Yeah, yeah. And literally, I don't feel like I can take credit for it. And there are plenty of things I'm absolutely terrible at, so if you'd like me to tell you about those, you'll see that I'm not boasting. Okay, the interesting thing here is, is that you're gonna, you're about to live a whole life like this. Yeah, is that exciting to you, or is it scary?
Adalia 1:05:43
It's a little scary, yeah, I don't know. I think, like, already, like, realizing, like, all, like, the, I don't know, like, the typical path, like, whatever it was, like, that's not for me. I don't think it's for very many people, actually, unfortunately, yeah, I don't know. After realizing, like, life could be just kind of whatever I make it to be is exciting and scary, because then it's like, Well, I actually, like, the not knowing. I think used to be really scary for me, but then now I'm like, Oh, whatever. Like, that's just great. Like, I why stress about something I don't know about. It's also there are times where, like, I would love to just be able to, like, maybe have somewhat of an idea, but, yeah, I don't know it's a bit of both. So stability, you're worried about stability, maybe, yeah.
Scott Benner 1:06:29
What about like, diabetes supplies?
Adalia 1:06:31
Yeah. So that is one thing where I just am, like, unfortunately, it is like, Okay, well, I know that I have to set myself up well, in that I either have a high enough paying job that I can, like, afford diabetes supplies, or one that has enough coverage. It is something that is always kind of the back of my head where I'm like, Okay, well, I do kind of have to go and do something a little bit more but, yeah, I don't, I don't know. Like, I what that looks like. I have no clue.
Scott Benner 1:06:58
Yeah, there's no way you're never gonna know. It's so interesting. Do you ever work on something, start doing something, and get to a point where you say to yourself, my brain's not wired this way. I can't do this. Do you just bail on it and go in a different direction? No,
Adalia 1:07:13
I wouldn't necessarily bail on it. I definitely like to see things through, whether I enjoy it or not, like I hate to leave things unfinished.
Scott Benner 1:07:21
Okay, does it cause you, uh, disappointment? If you do sometimes,
Adalia 1:07:26
yeah, I feel like, even with like, within myself, disappointment, but also like, then it's like, well, now I'm like, making someone else have to do it. And so then I'm like, Oh, well, I hate to do that. So Okay, all right, what
Scott Benner 1:07:39
if it's just a personal thing, if dropping it doesn't hurt anybody else, but it's like, you, I don't know if you got up one day and you're like, This is what I'm gonna do for the rest of my life. And you're like, six months into it, you're like, I don't like, jive with this well, like, could you just pivot away from it, or would you hammer through it? Do you think?
Adalia 1:07:55
No, I think I could pick. I would pivot away from it. I would not like, if it was something to that extent, like where it was, like my life, and maybe, like what I was doing, or like the job I had, like, whatever, if I, if I didn't jive with it, I would, nah, I wouldn't stay, okay. It's
Scott Benner 1:08:11
interesting. Would it cause you pain to stay, like, actual, like, mental anguish? Possibly, yeah,
Adalia 1:08:19
yeah. I don't know. Like, I I'm trying to think of different things, but like, I've lived such a short life, but like, I don't know there's nothing I can think of right now where I'm like, oh, like, I did leave that or like, I stayed in this too long. Like, I don't I try to not stay in things that aren't right for me. Too long. Yeah,
Scott Benner 1:08:38
I forgot that you were 18 a while ago. So you even know that your life's been short. Most people your age think they've been living forever. Nah. It's also interesting. And you're Canadian, but you're not really, yeah, yeah. I didn't know people from Canada thought like me, yeah, I thought, I just thought you guys drank beer, like, worked in like an oil rig and stab people in a bar like I didn't really know anything else happened there, but apparently, there's other things going on. I'm learning
Adalia 1:09:06
there are other things going on. Yeah, I've
Scott Benner 1:09:09
never been to the Netherlands either. Yeah, me neither. Well, yeah, no, my son came to us the other day, and he goes, I've been talking to somebody about the possibility of working in the Netherlands, and I went, really, I don't think it's gonna happen. I was like, okay, like, I never had a conversation like that in my entire life. Yeah, super interesting. So if I told you my son and my wife are very, like, methodical thinkers, like, does that isn't that weird.
Adalia 1:09:36
It's weird, but it's not at the same time. Like, I think that, like, I don't think people who aren't methodical thinking thinkers could like, if I was thinking about marrying someone, I would not think about marrying someone who thinks the same way as me. Oh yeah, we'd
Scott Benner 1:09:49
be dead if I always say people, if I met someone like me and we got married, we would just die. Yeah, one day we'd be like, Oh no, where's the food, but yeah. But once I. Yeah, with security, I can take very good care of myself, but if you left it to me at 18 to find a way to make a living, I would have been in trouble. And was what's wrong? Okay, are you being abducted? No, oh, I thought I heard you talking to somebody. I heard I thought you were sorry. I said, interesting. Oh, okay, sorry. How did I put it to my wife? Like, so my wife saved me. Like, my wife went to college and got a, like a, like an adult job, and that gave me time to follow. Oh, God, I am gonna have to let Arden do the thing. She said, okay, all right, so that gave me time to follow my head and, like, let it see where it took me. And in the beginning, I just pointed it at my kids. I was a stay at home dad, so I was able to, like, very like, seamlessly raise my I'm like, Can I be honest, a fantastic father. Oh, I believe it, but it's only because it's like, all the stuff is obvious. Like, you know, like, if it had been raining for four days, and then I woke up on Thursday and the sun was out and it was warm and I had plans, or I had to do the laundry or go shopping, I would just go, Oh, that's not important. We'll move that over and let's go take advantage of the of the weather. And I didn't have any probably didn't sit around all day thinking, Oh, God, I was supposed to do this. So I was like, I'll just take care of that another time. Like, Oh, do you do the reordering your to do list thing? Oh, yes. Oh, and it's, it's effortless, right? It doesn't matter. Like the most important thing becomes the fourth most important thing. Who cares? It gets pushed down. It
Adalia 1:11:32
gets done when, when it really needs to get done. And, yeah, my wife
Scott Benner 1:11:36
yells at me for that. Her brain can't make sense of it like she put stuff in order. I hate to do lists in general. I just, I hate it when she hands me a list. Do you know, if she gives me a list for the grocery store, she has less chance of getting what's on the list, and if she just tells me what to get? Really Yes, because when I walk around the store, I do it with no purpose. I don't think, Oh, my God, I'm sorry. I wish you were older, so we could be friends, but you don't want to be friends with a 52 year old guy from New Jersey. So I don't like that's gonna happen. That's I mean, how bad does that sound? I don't know. I'm friends with my dad. So are you? Yeah, why do tell me about you and your father's relationship? Oh, we
Adalia 1:12:22
just my dad. It was always when we were kids, like, very intentional about, like, doing things that we were all interested in and so and, like, even if we were doing something and he didn't know much about it, he would learn about it. And so I don't know it always like, yeah, there's just like, little like quirky things too, where, like, we've bonded over random things. Like, I think back to like, in the pandemic, when we were both like, like, I was doing school from home, and he was, he's always been working from home, like, he's worked from home since, like, before the pandemic. But we just, like, would always, like, grab like, we bonded over like, potato chips. It was probably really bad for us, but it was just like, I don't like little things like that, where, yeah, I don't know. Like, I can have a conversation with him and not feel like I'm being always being told what to do or how to do things, or like, whatever. Like, it's actually like, I'm treated like a person, and so I'm like, well, we can, like, I have no issues telling my parents things, like, I'm I'll just I don't know. I don't really. I not that. I don't hide things, but like, I don't, like, I'm not, like, afraid to tell them things, because I'm like, well, like,
Scott Benner 1:13:27
Yeah, they'll accept it, right? Yeah. Wait, were you making the potato chips, or did you go out and buy a bunch of different brands and just
Adalia 1:13:33
get them and try a bunch of different flavors and, like, whatever. What's
Scott Benner 1:13:36
the best potato chip? Oh,
Adalia 1:13:39
there's one. Well, I really like lime and black
Scott Benner 1:13:43
pepper. Lime and black pepper. Yeah, is that, like, is that a company that makes it, or it doesn't matter? It
Adalia 1:13:49
doesn't matter. I think there's a couple different ones that make it. And it's tasty, spiced, spicy ketchup chips. But you guys don't have ketchup chips, so I think
Scott Benner 1:13:58
we do. Do you? Yeah? I think so. I mean, it's America. We have everything true, yeah, and if we didn't make it, we'll get it, or we'll just take it. We'll just take it from you. Doesn't matter. Yeah, you probably did take the ketchup chips. Yeah, we'd be happy to just come up there and take your ketchup chips and be like, shut up. We're taking that. Yeah, yeah, no, we can do that. We've been doing it for like, hundreds of years. Don't worry about it. How do you think of America? I
Adalia 1:14:22
don't know. I don't really think of it as, like, sometimes I think of it as, like, a super far away country, and then I realize I'm literally, like, two hours from the border or but then, like, other times, like, it just seems like the same, like, very similar, at least,
Scott Benner 1:14:37
like, warmer Canada, yeah, yeah. When you think of Canada, do you think of it as, like, the greatest place in the planet? No, no. When you think of other places, do you think I don't want to go there because it won't be as good as here? Yeah, that you do think, okay, yeah, was, did New Zealand hold up? Or was there like a jumping spider in your bed? And you're like, why am I? Here,
Adalia 1:15:00
no New Zealand was incredible. There's New Zealand is the one that doesn't have, like, any predators. Like, they don't have any dangerous animals, really. They like, maybe, like, two species of, like, poisonous spiders, but, like, yeah? Like, they just have a bunch of birds, birds.
Scott Benner 1:15:16
Yeah, that's because there's nothing to eat the birds, right? Yeah, yeah. Oh, that's
Adalia 1:15:21
interesting. So, yeah, no, New Zealand was incredible. And, I mean, I stayed twice as long as I was supposed to already, and so it was just,
Scott Benner 1:15:30
where are you right now,
Adalia 1:15:32
I'm at home, but I'm working at camp for four months. So I've been at Camp since the end of April. What kind of camp? And I'll be there a summer camp, like a place
Scott Benner 1:15:41
where Canadians drop their kids when they're sick of them after school. Yeah, yeah, I get what you say. You said sure. Do you mean no, or do you mean yes? You got that exactly right, and it's kind of that okay, but
Adalia 1:15:54
yeah. So I worked there, so I got home from New Zealand, I had three weeks at home, and then I moved to camp, but I'm at home right now, and then I'm driving up to camp after we're done here. What's
Scott Benner 1:16:06
the scam at camp? Did they tip you at the end of the season? The parents?
Adalia 1:16:09
No, I actually don't get paid that much. Oh, my God, then why are you doing it, my friends, and it's a great experience, and it's just really fun, like I so I'm a lifeguard, and so I'd much rather be lifeguarding at the beach than to be lifeguarding in a inside a pool during the summer.
Scott Benner 1:16:25
Why are you lying and saying there's a beach in Canada, we have lakes. Oh, okay, that's not real. But okay, I hear what you're saying. Okay, so
Adalia 1:16:34
yeah, and I get to do canoe trips. So I love to go out and do, like, extended, like, week long canoe trips where, like, we're out in the wild and, like, no, like, completely isolated. And so I get to do that through camp as well. Listen,
Scott Benner 1:16:49
I don't mind that there's a hole in Canada that filled up with water. It's fine. And I like that you're there, but don't call it a beach. It's ridiculous. The Beach leads to the ocean where the sharks are. That's that, yeah, do something for me. Okay, you said your friends at camp. So you have other friends who are working the camp too. Yes. What do you guys do for fun?
Adalia 1:17:09
It kind of depends. As a group, we'll kind of like, sometimes we'll go for hikes. Sometimes we'll kind of just like, walk and walk around and talk like, I don't know, like we kind of board games. Some of my friends don't like board games, but I do, by
Scott Benner 1:17:26
the way, I thought this was your answer. Like, you guys just hang out and talk about the world sometimes and your lives. Yeah? And you find that very fulfilling, yeah, yeah. And when you meet people who would prefer to be, like, at a bar or screwing around or something like that. Like, there's, you can't find any value in that, right? No, not really. Yeah, all of your friends, do they have direction? Are you the only kind of rudderless one? Or are there, like, are you all very similar in personality? No,
Adalia 1:17:58
I'm kind of, I'm kind of the odd one a little bit.
Scott Benner 1:18:02
You're the hippie in the group, yeah? Okay, the rest put it that way, yeah. The rest of them are like, in university, they have a plan, yeah, yeah. I wonder if you'll end up being the most successful one of the group. Can you keep up with them for 20 years? And then get back to me before I lose my mind and tell me, because I want to know,
Adalia 1:18:19
I'll do my best. I would love to keep these friends around. So, yeah, excellent.
Scott Benner 1:18:23
Oh, my God, your parents must be so proud of you. I think so. Yeah, seriously, and have your sister for pulling it together. You think I remember that, but I remember, yeah, well, she's
Adalia 1:18:38
the one who now lives far away. So, oh, oh, on purpose. Like, she's
Scott Benner 1:18:41
like, I gotta get out of here. Yeah, well, she followed a boy to school. Uh, you can't do that, girls. You can follow a boy somewhere, because, well, what? Tell everybody, why? Well,
Adalia 1:18:51
sometimes, well, then you get you're stuck. If something wrong go something goes wrong, then you're just stuck in this place that you don't actually have any interest in because you followed someone else there,
Scott Benner 1:19:03
right? And boys are limited, right? They can only do so much. Yeah, can't only do so much Exactly. You're 100% right, by the way, oh my god, yeah. There's like, moments where I'm like, I don't know. I'm just, I don't know I'm a boy. I don't think about that at all. I had this great conversation yesterday with this returning guest, and we talked a lot about, like, kind of culture, and we got down this rabbit hole about talking about how people apologize before they share something about themselves, which I find very woke, I guess, in the bad sense of the word woke. I think there's good senses of the word too, like, but that idea of like, you know, you're about to say, like, I don't know how much you pay for insulin, and then, but first you have to spend 15 minutes going, I understand. I have been very privileged to have insurance and be able to afford my co pay and, you know, like, I'm housed and like, you know, you have to do all that before you say out loud, like. You know, I own a pair of shoes. And then, because, if you don't, you know, as soon as you go, hey, check out my shoes, somebody's gonna run up and be like, you know, there are people who don't have, like, Oh my God. Like, I know. Like, I don't know what that has to do with my shoes. So we were having that conversation, she's also, like, a very anxious person, and we got to the end where she was like, I don't know. I feel very bad for people with anxiety, like, I wish I knew how to help them. Like, it seems torturous, and she's like, I wish I could just take yours somehow, like, your confidence. And she's like, because I know when I'm anxious. I know it all doesn't make sense, and I can't not feel that way. Anyway, it was just this really interesting conversation, and then today's conversation is so completely different, because you, like, you just went to New Zealand. Yeah, yeah, I would do that. I know I would. The other day, this woman contacted me, and she's like, I'm a travel agent, and I think that you have, well, she's a travel agent who has type one diabetes, and she listens to the podcast. And she's like, you know, we do these things where, like, people, like you, who are, like, oddly famous, but not really, do these cruises so people who, like, can get together. And, you know, she explained, I obviously went through all the details, but like, my brain was like, Okay, that'll work. Like, I just knew, I was like, this will work, and if it doesn't work, I said, Is there a refund period? Like, I don't want to screw people, like, you know, I don't want them to have a bad time. I don't want them to be, you know, on some, like, rickety boat, like, you know, like, that kind of thing. Like, it needs to be, like, a big cruise line, like, that whole thing, and they have to have a good time. It can't cost too much money. And if, for some reason, you're wrong, and I don't have the the motivated people that you're saying, I do. I want to be able to give their money back, you know? And she goes, Okay, none of that is a problem. And I was like, Okay. And then I went through it in my head, and I was like, Okay, well, let's do it. And I was talking to my brother, and he goes, You think that's gonna be all right? I was like, No, it'll work out. And he goes, How do you know? And I'm like, I'm not sure. It just it'll be okay. It just will Yeah, yeah. I know it's gonna be fine. And he goes, where does the cruise go out of I'm like, Galveston. He goes Texas. And I was like, Yeah, I don't worry it'll be alright. And he was like, Okay. I was like, oh, like, a lot of cruises go out of there. And he goes, they do. And I'm like, yeah, the lady told me, anyway, I made, like, that giant decision. I know it's gonna be okay. Yeah, I'm not worried about it at all. And a lot of other people in my life are like, Oh my God. Like, this is nerve wracking. I was like, No, it's not. It's fine, but I know nerve wracking things, but even those things don't make me feel anxious. They just they somehow, like, slide onto another list in my head of like, things that might not go right. Does that make sense to you? Yep,
Adalia 1:22:42
yeah, it does.
Scott Benner 1:22:43
Oh, my God. All right. What? What have you not said that you want to say anything at all. Let
Adalia 1:22:47
me see I did make you have a list, but it wasn't you made a list, yeah, but it wasn't like anything crazy. I can't even remember what I emailed you about. Like you want
Scott Benner 1:22:59
me to find it Sure. All right, hold on a second. It won't be hard to find your name. All right, here we go. Yeah, it's so interesting. It's also, like, it's a short note, which is what I would have done, too, my name, my name. You want me to read it? Sure you can. I don't remember what I said. All right, hold on a second. It says, Oh, hey, Scott. It says, My name is adelaya, and I am an 18 year old Canadian living with type one. I found your podcast almost immediately after my diagnosis in 2021 and I went searching for the episodes with people around my age. There were a few, and the ones that I listened to were incredibly inspiring, as I recognized those were people who were living with the same day to day struggles that I had just begun experiencing. I've had a lot of things change in my life post diagnosis, not necessarily because of diabetes, if I'm being honest, the diabetes has become a bit of a blessing. I am currently traveling around Australia, New Zealand, on my own while taking a bit of a break from school. Adventuring is one of my favorite things to do, and I haven't let my diabetes diagnosis change that I would love to share my story with you so that other teenagers and young adults can feel related to when it comes to type one. Thanks for the opportunity. I'm looking forward to hearing from you. Okay, why has it been a blessing?
Adalia 1:24:22
I think part of it, like we kind of talked about it earlier, where I just, like, realized that, like the astronaut thing would have was not for me, and it was like, needed, like, something outside to like, because I gotten really stuck in it, I think because it became something that other people expected of me. So I was like, Well, I just have to do this now and then. It kind of gave me an out, like, I was like, oh, like, I don't have to do this. It led me to working at camp. It led me to being able to canoe trips, which I now have done, like, pretty much every summer since my diagnosis, yeah, just like, it's let me discover more of my interests and things that I love to do, instead of feeling. Like, bogged down by like, this, like, unreasonable expectation for myself that I didn't even have anymore, but I felt like other people had for me, and
Scott Benner 1:25:08
because you said you were gonna do it, yeah? And now you're like, I don't want to do that anymore, but I don't want to let people down. Yeah? So interesting. Wow, I can't believe that you and I are having this conversation. Like, 12 hours after Arden and I spoke about what we talked about last night, which I can't tell you about, because it's none of your business, but now it's not, and it's not you. I would tell you there's a lot of people listening to us have this conversation which you don't even give a shit about. Do you it doesn't bother you at all, really? Yeah, I know people say all the time, like, how do you talk in front of all those people? I'm like, I don't know. I just stand up there and I talk like, and they're like, it's not nerve wracking. Like, I don't care. It's like, I really, like, I really don't like. It doesn't matter to me how many people are there, like, few or many? Like, although I would tell you that if I showed up to speak at something and there was like, nobody there, I'd be embarrassed, yeah, yeah. But because I've seen it happen to people, and watching them try to pretend that they're not embarrassed by it makes me uncomfortable. It sucks. Like you fly across the country to speak at something, and they give you, like, an hour, right? And you're like, Oh, I'm speaking from 10 to 11, and then, like, I'm walking around because I'm not speaking from 10 to 11, and you walk past a room that this room is set up to hold 200 people, and there are like, four people in the front row, and it's like they're having a private conversation. And, you know those persons like, oh my god, I flew here for this, yeah, and no one came. Like, it's got to be devastating. I would I pretend to be sick? If I walked in that room and I saw four people, I'd be I gotta go. I don't want someone taking a picture of me talking to four people at this event. Do you ever notice how they do it on social media? They they find one table with people in it, and then they get somebody to take a picture of them on stage from that angle, with the heads in the front that so that it looks like the room's full. It's my favorite it's my favorite thing they do. That's why I always take the camera, I turn around, I take the picture of the room behind me, over my shoulder. I'm like, check it out. Not a empty seat in here. That's just me being petty. But I have to have things, you know what? I mean. Yeah, everyone does Aliya, you're fantastic. You know this though, so I'm not gonna bother telling you. I appreciate you doing this very much. You had a good time. I talked too much, but you really got me, like, worked up. Yeah, that's okay. Also, you're 18. When I let you talk, you've like, pissed out pretty quickly. Do you know that? Do
Adalia 1:27:34
you know that? Yeah, I do realize that sometimes it's
Scott Benner 1:27:38
a limitation to talking to younger people. That's why I feel I so what will happen later is people will be like, he talked too much. He didn't let her talk. I let her say every You said everything you want to say, right? Yeah, yeah, absolutely. I know. I know how to do this. Is what I'm saying, Yeah, especially with the little kids. So like, he didn't let him talk. I'm like, what if you think he was gonna say? He's nine, he's got four thoughts. He's out of the market. Yeah? No, yeah. What are you gonna launch into what you think of the conflict somewhere like you don't give a All right, you're terrific. Hold on a second, okay?
The conversation you just heard was sponsored by touched by type one. Check them out please. At touched by type one.org, on Instagram and Facebook, you're gonna love them. I love them. They're helping so many people. At touched by type one.org, I'd like to thank the Eversense 365 for sponsoring this episode of The juicebox podcast and remind you that if you want the only sensor that gets inserted once a year and not every 14 days, you want The Eversense CGM, Eversense cgm.com/juicebox, one year, one CGM, you
Unknown Speaker 1:29:00
OmniPod.
Scott Benner 1:29:04
I can't thank you enough for listening. Please make sure you're subscribed, you're following in your audio app. I'll be back tomorrow with another episode of The juicebox podcast. The episode you just heard was professionally edited by wrong way recording, wrongway recording.com, you.
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The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here. Recent donations were used to pay for podcast hosting fees. Thank you to all who have sent 5, 10 and 20 dollars!
#1342 Community Spotlight: T1D Exchange
Talking about places and people who help.
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or wherever they get audio.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Welcome back, friends. You are listening to the Juicebox Podcast.
I'm always hearing stories about people and entities that are out there in the world doing great stuff for people living with diabetes. Today, in this short episode, I'll spotlight one of them. Perhaps their efforts can help you. Maybe they're happening near you, or maybe it's something you'd like to get involved in one way or the other. We're gonna throw a light onto all the good work that's being done out there. I hope you enjoy hearing about it, and I hope that it helps to lift you up and make you feel you know, like you're not alone. Nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan. If you're looking for community around type one diabetes, check out the Juicebox podcast. Private Facebook group. Juice box podcast, type one diabetes, but everybody is welcome type one type two gestational loved ones. It doesn't matter to me if you're impacted by diabetes and you're looking for support, comfort or community, check out Juicebox podcast, type one diabetes on Facebook you I'm
going to start today with the T 1d exchange. This is probably something you hear about in the bumpers of every episode that you listen to, but the T 1d exchange is a non profit organization that's focused on improving the lives of people with type one diabetes through research. Right? They are involved in how do I explain to you what they do? You go to T 1d exchange.org/juicebox, and you join their registry and fill out a survey. That's all you do. This whole process might take you 10 minutes. They take your answers right and then they I don't know how to it's data. Then when I don't know companies or when institutions or anybody who's doing research for diabetes, when they need data to make sense of you know, what's important or what they need to do. Like, I'm obviously not the right one to tell you about this, but, but I'll read you a couple of things in a second. But my point is, is that they need to know from huge swaths of people the answers to these questions. It actually helps research move forward. It actually helps things get done, like CGM, for example. So you give up about 10 minutes of your life. You do it from your house, you do it from your tablet or, you know, your computer or your phone. You could probably do it while you're, you know, sitting on the sofa. This is not like a heavy lift, is my point, right? The answers to your questions are not things you're gonna have to think about. They're gonna ask you questions about diabetes that you know the answers to. They're looking for caregivers, of people with type one and adults living with type one. They need you to be a US resident, but that's pretty much the only couple of things you need to be they would love it if more men would do it. More people of color would get involved. But they're looking for everybody caregivers, type ones to jump on, join the registry, take the survey and help. Super simple. I hope you do it. But here's a couple of things, T 1d exchange supports numerous advancements in type one diabetes research, care and technology focusing on improving patient outcomes and quality of life. They do patient and clinical registries, right? So the T, 1d exchanges, large scale patient and clinical registries have gathered invaluable data on various aspects of living with type one diabetes. These registries have been essential in identifying trends and challenges in type one diabetes management, from glycemic control patterns to health care disparities. They use real world evidence to help with these things, right? So their data has been in instrumental in evaluating the use, adoption and effectiveness and effectiveness of diabetes devices like continuous glucose monitors and insulin pumps. This information has helped drive innovation in diabetes tech, making devices more user friendly and effective. So this is my point. You go answer a few questions, and I don't know, two years from now, you get a better device that's a big deal like it really is. They need your answers to these simple questions. It is genuinely a situation that is just, it's no skin off your ass. You know what I mean? Like, you are not going to be put out by answering these, these questions or joining the registry. Jump on, sign up, answer the questions. They actually send out follow ups once a year to continue. You know, they don't bug you. They're actually really good about that. And sometimes there's opportunities for you to be involved in other stuff. You. Get an email and be like, Oh, maybe I will do this. Like, I've known people who have been in CGM studies, for example, listeners to the podcast and actually got paid a little something to do it, and had this experience and were able to help more. But if you just want to help from your couch, that's absolutely crazy good too. Let's see, during COVID 19, telemedicine research was done the T 1d exchange supported research on the effectiveness of telemedicine in diabetes care. This has highlighted the benefits of remote care for people with type one diabetes, which has been essential in advocating for the long term integration of telehealth and diabetes management. That's another thing that the T 1d exchange did. They published significant findings on disparities in diabetes care and outcomes, particularly around racial and socio economic factors that impact access to technology and glycemic control. Their research has informed initiatives aimed at improving access to care and technology for underrepresented groups. Let's talk about insulin affordability. T 1d exchange has been a leading voice and understanding and addressing insulin affordability challenges through surveys and data collection, they have provided insights into the financial burden of insulin cost, which has fueled advocacy efforts for better pricing regulations and support systems. What else? They've conducted research on glycemic management in children and adolescents with type one diabetes, emphasizing the need for age specific strategies and the importance of early and consistent use of diabetes technology for better outcomes. I can go on and on if you want, but T 1d exchange.org/juicebox, go there. Join the registry, fill out the survey. If a look, you guys. Don't know how many people listen, but it's a lot more than you think. If 1000 of you just did this today, that registry would be that much more rich and valuable. It would just be fuller of good information. It would be fuller of ideas waiting to be mined by researchers, waiting to help you. It's, I mean, how often do you get to do something that helps other people, that will actually help you or your family as well? All right, couple more things, let's see the organization's quality improvement. Collaborative engages over 50 clinics improving care standards through shared data and evidence based best practices. They focused on disparities in care, showing that CGM users generally have better glycemic control than those using self monitoring methods, which has implications for device adoption and access advocacy. Oh, look at this. The T 1d exchange has been at the forefront of studying off label GLP one use among people with type one diabetes, particularly its relationship to cardiovascular help, despite glps recognized benefits in type two, its role in type one is less understood, and this research is helping establish new care pathways for patients with type one who may benefit from GLP one therapies. So this is something that could end up helping you down the line in I mean, imagine, imagine that they help prove that GLP ones have significant impacts for cardiovascular health, for type ones and 40 or 50 years from now, not to be too heavy handed, but you don't have a heart attack because of something that got figured out today, because you signed up for the registry and filled out the questionnaire like that's helping, right in ways that you almost can't imagine. T, 1d exchange.org/juicebox, is there more here? Let's see. All right, I'll wrap it up with this. T, 1d exchange, collaborative program with over 50 us clinics works to improve care through real world data sharing, the program has enhanced best practices across type one diabetes care, allowing clinics to identify and act on areas needing improvement, which has scaled successful practices across participating clinics. They provided data showing that continuous glucose monitors generally achieve better glycemic control and fewer severe hypoglycemic events compared to those using traditional monitoring. This research supports advocacy for broader CGM access across the more diverse patient demographic they investigated, like we said, GLP one finding that the findings indicate limited use of GLP one, despite potential benefits for patients with obesity and cardiovascular conditions, paving the way for additional research on the effectiveness for it with type one management. I'm telling you you want that research done so you've been listening to this for nine minutes, just 10 more minutes, and it's over, and you've done something awesome. T 1d, exchange.org/juicebox, I'm going to put the link in the show notes right at the top, you can click on it and fill it out. They'll know you came from me, which helps support the show. But that's not why I'm telling you about this. I've been telling you guys about the T 1d exchange for a long, long time, years and years and years, because this is a simple and effective way for you to help with type one diabetes research, and you don't need to leave your. House. I hope you do it. Do it now. Don't wait. T 1d exchange.org/juicebox, now the music's going to play, and if you're interested in hearing about the juice cruise and some other stuff we have going on, you can listen for another couple seconds. But this is pretty much the end. I'm going to keep coming back and doing this. I need a name for this, if it's like community highlight, or, you know, spotlight, or something like that, but, but I like this, we're going to do more and more. And actually, there is, I started a Facebook post about this, and people are just piling in organizations and other people who have been doing great stuff for people with type one so I'm gonna have no shortage of great works to tell you about in these short episodes. So look forward to another one next week.
If you or a loved one was just diagnosed with type one diabetes, and you're looking for some fresh perspective the bowl beginning series from the Juicebox podcast is a terrific place to start. That series is with myself and Jenny Smith. Jenny is a CD CES, a registered dietitian and a type one for over 35 years, and in the bowl beginning series, Jenny and I are going to answer the questions that most people have after a type one diabetes diagnosis. The series begins at episode 698, in your podcast player. Or you can go to Juicebox podcast.com and click on bold beginnings in the menu.
I was looking for a way that we could all get nice and tan and meet each other and spend some time talking about diabetes. How are we going to do that on a juice cruise, juice cruise 2025 departs Galveston, Texas on Monday, June, 23 2025 it's a five night trip through the Western Caribbean, visiting, of course, Galveston, Costa, Maya and cosmel, I'm going to be there. Erica is going to be there, and we're working on some other special guests. Now. Why do we need to be there? Because during the days at sea, we're going to be holding conferences, you can get involved in these talks around type one diabetes, and they're going to be Q and A's plenty of time for everyone to get to talk, ask their questions and get their questions answered. So if you're looking for a nice adult or family vacation, you want to meet your favorite podcast host, but you can't figure out where Jason Bateman lives, so you'll settle for me. If you want to talk about diabetes, or you know what, maybe you want to meet some people living with type one, or just get a tan with a bunch of cool people. You can do that on juice cruise 2025. Space is limited. Head now to Juicebox podcast.com and click on that banner, you can find out all about the different cabins that are available to you. And register today. Links the show notes. Links at Juicebox podcast.com I hope to see you on board. I can't thank you enough for listening. Please make sure you're subscribed or following in your audio app. I'll be back tomorrow with another episode of The Juicebox podcast. You.
Please support the sponsors
The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here. Recent donations were used to pay for podcast hosting fees. Thank you to all who have sent 5, 10 and 20 dollars!
#1341 Sally Sells Sea Shells
Kristie has a 13 year old with T1D who was diagnosed at 10.
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or wherever they get audio.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends, and welcome back to another episode of The juicebox podcast.
Christy has a 13 year old with type one diabetes who was diagnosed at 10. We're going to talk a little bit about the difference between the Australian and United States Medical Systems, the value of community and finding others to deal with the same things that you are and much more, nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan. Don't forget to save 40% off of your entire order at cozy earth.com All you have to do is use the offer code juicebox at checkout. That's juicebox at checkout to save 40% at cozy earth.com if you are the caregiver of someone with type one diabetes or have type one yourself, please go to T 1d exchange.org/juicebox and complete the survey. This should take you about 10 minutes and will really help type one diabetes research. You can help right from your house at T 1d exchange.org/juice, box. When you place your first order for AG, one, with my link, you'll get five free travel packs and a free year supply of vitamin D drink, ag one.com/juice box.
This show is sponsored today by the glucagon that my daughter carries, gvoke hypopen. Find out more at gvoke glucagon.com, forward slash, juice box. Did you know that despite the increase in CGM use, only a third of people living with diabetes meet the recommended guidelines for healthy glycemic levels. Today's episode is sponsored by Medtronic diabetes. Learn more about hyperglycemia at Medtronic diabetes.com/hyper.
Christy 2:00
My name is Christy. I am from Australia. I have a 13 year old type one diabetic daughter. I have a 21 year old son, and I have four step kids and six grandchildren. Now,
Scott Benner 2:17
I want everybody to know that hopefully Christy's connection thing is, because she's from Australia, and she's so far away. So Christy, every once in a while when you stop talking, it gets electric, which is, I don't believe anything you can do about it. So we're going to try to make it through. I also want to tell you that while I've only probably recorded with a handful of Australian women, you all sound exactly the same to me, and I'm sorry for that. Like, generally speaking, I can't tell the difference between you and anyone else I've ever spoken and as a matter of fact, when you came on originally, I thought, Have I already recorded with her
Christy 2:59
slang? That was he slang.
Scott Benner 3:01
It gotta be casual, casual chit chat. Yeah, interesting, I don't know. And tone, even tonally, you sound like I'm like, Oh, this is the same person. But obviously you're not the same person. I am gonna say this. I think I'm detecting that your microphone is picking up. S's strangely, okay. Can we test that to see if I'm right? Can you say something like
Christy 3:26
Sally snakes or something like that? That's what
Scott Benner 3:28
it is. Holy crap. How was it? How's it doing that? Can you move the mic farther from your mouth? I can give it a go. Do the Sally sells. She sells down at the seashore. Again.
Christy 3:40
Sally sells seashells down the seashore. Yeah,
Scott Benner 3:43
you're not allowed to use any words that begin or end with s okay.
Christy 3:49
That cuts out the Aussie slang.
Scott Benner 3:52
Yeah, right. People are gonna need to understand if they want to hear some from somebody from Australia. Be clear to them, your internet runs through two threads that go under the ocean, right? Like it's very Yeah, you're lucky to be talking to the outside world, honestly, at 11pm at night. Plus, yeah, you have to be up very late. I'm bitching to my wife last night. I'm going to bed. I'm like, why am I recording so early tomorrow? I said my scheduler is out of their mind. And my wife goes, Do you not make the schedule? And I was like, yeah, there must be a reason for this, but tell me one more time. It sounds like you made two babies and rented four. So go, go over them again. For me, we've got
Christy 4:29
a Yours, Mine and Ours situation. So I, I had my son, and I met my husband. He had two biological children, and he had two step children. And then together we had our Emily,
Scott Benner 4:43
so you had you had one coming in, he had four coming in,
Christy 4:48
yeah, ours and hers, because there was two that were actually my husband's stepchildren.
Scott Benner 4:58
Yeah, yeah, huge. I'm going to ask you a question that has nothing to do with anything Sure. How does a man leave a relationship with the children that are step that are stepchildren?
Christy 5:13
So he raised the boys, so he met his first partner when they the kids were two and five, and they were together for 13 years, and then had two girls together. And then when they separated, he just never, he just always continued to look after them. Wow.
Scott Benner 5:33
So he seems like he might be an exceptional person. Is that correct? He
Christy 5:36
is. He is very exceptional, yes. And then he took on me and my son.
Scott Benner 5:41
It's like, come on, I can do more, yeah, but
Christy 5:45
he had no biological boys, but he had three biological girls. So he just, he just collected the boys, yeah?
Scott Benner 5:55
Well, listen, you gotta do what you gotta do. So you and he have a baby together. That baby has type one. That's correct, okay? And she's 13. Did you say yes, just turned 13. I can't believe I remember that. I'm so impressed with myself right now. So you and he have a 13 year old together who has type one. Does anybody else have autoimmune any of those other kids? No,
Christy 6:18
no. There's nothing in the family, no type one diabetes, no autoimmune No, celiac, no, nothing.
Scott Benner 6:26
How about on your side of the family? Nope, nothing interesting. How old was she when she was diagnosed?
Christy 6:32
She was 10 years old. It's been three years. She didn't go into DKA. She I took her to the doctors because I thought she had a bladder
Scott Benner 6:40
infection close enough, yeah, whatever gets you to the doctor, right? It doesn't matter. That's right. Did they figure it out, though, once you came in talking about bladder infection. This episode is sponsored by Medtronic diabetes, a company that's addressing hyperglycemia head on. Learn more at Medtronic diabetes.com/hyper and now we're going to hear from Medtronic champion Maddie. Hi.
Speaker 1 7:06
My name is Maddie Fisher. I was 12 years old when I was diagnosed. It was really, really hard through my adolescent stage. I hated diabetes. Sometimes I would cry and just say, like, Why me? And I think, you know, just from hearing from people in the community that a lot of people have that very similar story, what did you find that helped? I was able to see all the latest technology that other type one diabetics, especially in the Medtronic champion community, were using, and I stumbled across the N pen. And this girl was using the N pen. I just messaged her. Tell me all about this. I called Medtronic, and the lady that I was talking to, she's like, Yeah, I
Scott Benner 7:46
totally understand. It feels like meeting more people helped you.
Speaker 1 7:50
Yeah, I definitely did. You know, I used to hide everything, and now I wear it with pride.
Scott Benner 7:55
What have you learned since you've been wearing your technology openly?
Speaker 1 7:59
There's great support. And then you know you have Medtronic who just elevates that support.
Scott Benner 8:05
Prolonged hyperglycemia can lead to serious health problems and long term complications. Learn more about hyperglycemia at Medtronic diabetes.com/hyper if you take insulin or sofanylurias, you are at risk for your blood sugar going too low, you need a safety net when it matters most, be ready with G vo hypo pen. My daughter carries G voc hypo pen everywhere she goes, because it's a ready to use rescue pen for treating very low blood sugar in people with diabetes ages two and above that. I trust low blood sugar. Emergencies can happen unexpectedly and they demand quick action. Luckily, jivo kypopen can be administered in two simple steps, even by yourself in certain situations. Show those around you where you store GEVO kypo pen and how to use it. They need to know how to use jivo kypopen before an emergency situation happens. Learn more about why gevok hypopin is in Arden's diabetes toolkit at gvoke, glucagon.com/juicebox, gvoke shouldn't be used if you have a tumor in the gland on the top of your kidneys called a pheochromocytoma, or if you have a tumor in your pancreas called an insulinoma, visit gvoke, glucagon.com/risk, for safety information, yeah.
Christy 9:27
He tested a sugars, he did a ketone test, I believe. And then he said to me, I think you might need to go to the hospital, because I'd like to get a have a blood tested and see what's going on. And then he said, I'm suspecting possibly type one,
Scott Benner 9:43
and that was the end of that. Oh, well done for him. Yes, that's fine. Yeah, what I'm going to ask you, because of the list you sent, seems very specific, like you really have something you want to talk about. So let me start with, why did you want to come on the podcast? I just feel there's a lot of information. Question
Christy 10:00
out there for Australians that there's, you've got a lot of Australian listeners, and there's a lot of information that we've got here in Australia that can also be brought to the attention
Scott Benner 10:13
of of those,
Christy 10:14
those people. So we've got a lot of support groups in Australia. We're also missing a lot of the technology in Australia, a lot of the technology that you have over there, we haven't seen here at all yet. So I think there's very there's a lot of differences between the Australian Medical System and the American What
Scott Benner 10:38
do you have that you think people don't know about
Christy 10:43
the support network in Australia, we have a foundation called the type one foundation, which is just a Support Foundation for families. They send out these new awesome packs for the type one diabetic, the ones they've just been diagnosed, say that they're not in this alone, and the parents making them feel like they're not in this alone. There's a lot of other Facebook websites, Facebook pages, sorry, that are out there that Australia, that we don't sort of get told about. You have to go searching for it.
Scott Benner 11:21
How did you go about finding them? Just touch it into
Christy 11:24
a search bar, if I'm honest. Yeah, when you're sitting in the hospital for five days and you're Google, which you shouldn't Google, and then you find all this really horrible stuff, and you don't know where you're going, you don't know what's happening that first five days that we were in there, I just remember feeling absolutely lost,
Scott Benner 11:47
overwhelmed and alone. I
Christy 11:53
think was a big thing. I didn't know anybody else that had type one. I've never even really heard of it before. And then slowly but surely, I started finding these groups, and now the type one foundation make packs that go to the hospitals, that give you a little bit of information on just to connect I see with them, and it gives you a sense of community. Start chatting with people that other families that are going through what you're going through.
Scott Benner 12:23
Yeah, see, I think it's interesting because you said there's this information out there that people can't get a hold of. And then I was like, How'd you find it? You're like, I Googled it. And so I thought, I bet you people could get hold of it. And so I think what so I think the real like thing for you is you're saying, like, there's this great help out there, and it really helped me. So that's what I'm Yeah, so that's what I wanted to ask you about. So how did you feel helped by it? What did it do for you? Oh,
Christy 12:52
it just connected me. It really connected me to other families, people that were going through and could understand what it meant to be up all night, what it meant to have to inject your child with this drug that too much or too little of could cause dramas that nobody else seems to understand. Everybody seems to go, oh, but you've got a handle on it, haven't you, these communities that are out there that where you ask silly questions like, how many carbs are in this or what happens when we go and play basketball? What do you feel helps you, or
Scott Benner 13:34
just a sense of connectedness? And
Christy 13:37
I think your Facebook group does the same thing. People can get on there and and chat and converse and see that they're not alone. Is the big it's a really big thing for me.
Scott Benner 13:52
I love what you said about feeling supported by by finding information and by finding people too. Why was that so important? What Where were you at when you look? Because, let me tell you why I my mind doesn't work that way, like when I needed support. I created some for myself. And also, being fair, it was 2007 and the Internet wasn't quite what it is today, obviously. So the idea that you could go to a thing and type in anything and get a lot of information back, I mean, the Internet was still pretty new to us in 2007 No, no kidding. So I was like, I'll create my own support. I started doing it through email for people. And then I found a program called iWeb. Like it just it came pre installed on my computer, and I read it, and it said that I could put my thoughts on the internet. And I was like, Ooh, and I made a blog like that. That's how that happened in the beginning. Like, seriously, I didn't know anything about anything, but my point is. That it's my inclination to to create the support. But that's not how most people think about it. Most people think about like, how do I find it? And so what? What do you feel like? Let's see what my question is here. I know what it did for you. Why did you but why did you need it like, what was the driving force behind it?
Christy 15:26
I think because even I didn't understand
Speaker 2 15:28
what was going on, and we're in a small town
Christy 15:34
with it not being around, and I was incredibly scared. I was scared for my daughter. I was scared for me. I was scared for our relationship. I was scared for my other children. Christy,
Scott Benner 15:48
can we say that you were frightened? Sorry,
Christy 15:53
yeah, I was frightened by what was going to be my life, what it was going to look like, what it was going to look like for my daughter,
Scott Benner 16:05
I was the unknown. The unknown had you absolutely
Christy 16:09
the unknown, yeah, and you've thrown all this information comes at you on how to keep her alive and how to do this, and how to do that, and how to bowl us. And all these words come into your vocabulary, and you're bombarded
with information.
But once I got the information, and once I sorted through it,
Scott Benner 16:35
I filed through it, made my made my way through it. Yes, right? Yeah, considered it, absorbed it, and Reno absorbed. Absorbed has an S in it. I shouldn't have done that. Sorry. That's right. I'm not gonna say it once you got through it. Yeah, I found at the
Christy 16:57
other end of all of that, I was sitting alone with my thoughts, and I didn't know what it looked like for my daughter, so I reached out to a young girl, as she was a young adult, and she started talking to me about type one, about her condition, and she was a vibrant, busy, working, healthy young woman who then put me in touch with the type one foundation, and I met all these other vibrant, beautiful, successful families dealing with type one diabetes,
Scott Benner 17:45
yeah, so then in everyday life, you see people who are at the moment, I would imagine, confounding your expectations of what this means absolutely, yeah, okay, all right, that makes a lot of say
Christy 17:59
that You don't see. You just told this diagnosis. You just told your child has type one. You've got to inject insulin, you've got to count carbs, you have to keep them alive. And I wasn't sure what keeping her alive looked like as an adult. I didn't know if she could still do things
everybody else could do okay as an adult? Yeah,
I was just scared. I didn't know what it meant. I didn't know what type one diabetes meant as an adult or future.
Scott Benner 18:33
Do you recall what any of your unfounded concerns were in the beginning, like, what popped into your head that was going to happen to her, I think just managing it, I thought it
Christy 18:48
was going to restrict her in everything she ever did for the rest of her life. I thought it was going to make her sick. I don't know why. I just thought she had a chronic illness and she was going to be sick for the rest of her life, and unwell she was going to be unwell for the rest of her life, sickly,
Scott Benner 19:06
always not feeling well, always under the weather, like somebody turned her down a little bit. Everything
Christy 19:12
was dangerous. Everything was dangerous for her to exercise was going to be dangerous for her to eat was going to be dangerous for her to live her life, to work, to drive a car, to have a child, have a baby for her, to meet somebody. I thought everything was just going to be dangerous for her for the rest of her life.
Scott Benner 19:34
How long did you feel that way before you got better information, till you met that girl? It was a long time. It
Christy 19:42
still happens. It still doesn't go away.
Scott Benner 19:45
It was probably a
Christy 19:47
couple of months after I sent her back to school and she started, we started to get back into basketball, and we went down to the beach one day, and. Because all she wanted to do was be a normal kid. And I think the first time I actually laughed about diabetes was we're at the beach. My husband has taken her to that water's edge. She's in the water. He's watching diligently. I've gone and sat down near the flags in Australia, you've always got to sit between the flags. It's a very popular beach. She come running out of the water and said, Mom, I need your coke. I need to get high. And I've just instantly grabbed the Coca Cola and threw it into her and said, Have some of this while she's swimming. And then it wasn't until she reached the water again I sat and I realized what she just yelled out and screamed as she was running up the beach, Mom, I need coke. I need to get hot. And I didn't realize until that very moment, exactly that was the first time that I laughed about diabetes because I thought it sounded so funny to something else, not to me. It was Coca Cola I was giving her. I just threw in some Coca Cola so that her sugar level would come up as she was swimming. But in that point in time, I had no idea what she was, how it was perceived to anybody else.
Scott Benner 21:17
Listen, Chrissy, it's a lot easier to kill a great white shark with your hands, if you're yakked up on some blow, you know what I mean, like, you could really kind of get in there and fight. No idea,
Christy 21:30
no idea what it looked like. But that was the first time I think I actually laughed about diabetes, because before then there was no laughing, there was just crying and tears, and I was alone. And then that was the same weekend I met the young lady who stopped to talk to us about her devices because we were still on pens. Okay, we didn't know even what technology was really out there. So, yeah, we were just doing pens. I was just injecting my daughter. I was giving her needles every day. Was
Scott Benner 22:03
that part of it frustrating and upsetting as well? Absolutely,
Christy 22:07
it was sad because she had a needle phobia, mainly because when we're in the hospital, she was just screaming because she was getting her blood tested. But the second day, she said, I want to reject myself. I want to do this by myself. And she started doing it by herself. But in the middle of the night, the finger pricks the having to leave whatever she was doing and stopping whatever she was doing to have a needle really started upsetting her. Yeah, and that's really tough. It's really tough. And you feel like, what am I doing? And it was, and that's when you feel alone. That's when I felt really alone. I just felt like we were the only person on the planet dealing with this, yeah, until I found a community of people.
Scott Benner 22:56
There's, I mean, JDRF Australia says there's 130,000 Australians with type one. That is a small number. Well, compared to the I mean, how many people are trapped on Australia? Huh? I'm actually typing live in Australia. Don't worry. I'm just saying that because of your internet. Well, listen, 26 million people as of 2022 so that really is the, I mean, that's my point, right? Like, hold on a second, 130,000 is what percent of 26 million? It's point 5% it's, it's based on the My point is, you're not going to meet a ton of people with type one diabetes in Australia. I don't diabetes
Unknown Speaker 23:42
in Australia. I don't think,
Christy 23:44
no, but it's kind of like when you buy a new car and it's a purple car, and you think you've got a purple car, and all of a sudden you start seeing purple cars everywhere. Once we had type one I think I said, I live in a really small town, and just even recently, I've met five other people in our small town that have got type one diabetes. There just seems to be, you know, more and more people you talk to, oh, my dad's got it, or my my niece has got it, my granddaughter's got it. It seems so much more prevalent now that you're in the environment of type one diabetes. So
Scott Benner 24:26
if people spoke about a little more and were maybe more open about it, you think you might see more people too? Yeah, absolutely not that you need to, by the way, but like it just, you know, if it was a thing people were talking about all the time. Maybe you would find more people. It's interesting. Yeah,
Christy 24:43
that's where these groups, and these your Facebook groups, and even the Facebook group the juicebox podcast comes into it. You can ask these questions, or you just read. You don't even have to ask. You don't have to participate. You can just flick through. Comments and see something that might sound similar to what you're going through or exactly spot on, and you realize that you're not you're not alone in this, this journey and that, I always read somewhere people always say, hey, you know what? You so sorry that you've joined the club, but it's one of the best clubs to be in because everybody's so supportive. And in Australia, they really are. They really are. It's It's amazing the amount of people I've met. Now that I call my friends
Scott Benner 25:33
interesting, it's fantastic. I know people I'll never meet. I think although I have to say, I have to say, I've been having this conversation with a person. I shouldn't say this on here yet, because it really might not work out, but I guess if it doesn't work out, I'll say that again too. But I think we're going to do a cruise for listeners to the podcast. That'd be so cool. I actually think that's going to happen. Yeah, and so we'll get to meet people, which will be fantastic, and help them all meet others to get what you're talking about. You know what I mean? So, yeah,
Christy 26:10
well, the Taiwan Foundation, well, in a couple of weeks, we're actually going to dream world for the day. So they hire a function room and dream at dream world. Then they gather the tandem, OmniPod, Medtronic, Dexcom libre, it's all set up so all these different reps are all set up in the room as well. All these children all come together, all these families all come together. We communicate, we chat, we talk, we introduce ourselves. It's a massive community and a massive help to everybody, to just meet these people. And you meet babies with type one diabetes. You meet this mum, she's got type one diabetes, and her children don't. Or you get to just chat and meet people, and it's incredible. We've started. Emily and I actually volunteer a lot of our time. So we go down early. We help set up. We're on the meet and greet tables.
Scott Benner 27:14
We are
Christy 27:16
part of the merchandise stand. Emily decides she wants to meet all the other little kids and introduce herself to the other little kids and be like a big sister. Hey, look at my pod or look at my Dexcom. That's
Scott Benner 27:29
excellent. No, it's amazing. Good for you. Hey, you were talking in your note about lack of technology updates. I think you mean in Australia, is that correct? Absolutely. Yeah, yes.
Christy 27:40
We don't even have the g7 at the moment. So New Zealand's got g7 and Europe's got g7 Australia is still behind with the g7 we don't have the mobile app for tandem, so Emily's running a tandem Dexcom setup. There's no mobile app for that. We don't have OmniPod five. We've only got OmniPod dash,
Scott Benner 28:08
and we've
Christy 28:10
got Medtronic 780, I believe. Wait, what
Scott Benner 28:15
is going on? You have, I think, three or four times more people living there than in New Zealand. How does that happen?
Christy 28:23
I have no idea. Our Therapeutic Goods Administration, I think it's called the TGA. Have just they're just slow in approving it, in improving the Dexcom g7
Scott Benner 28:35
there are 26,000 people in New Zealand with type one diabetes. What the hell you guys are getting shut down by bad government or something? Something's going on here? Yeah, yeah.
Christy 28:45
It just takes forever. Everything takes forever in Australia to get approved through the TGA. So we see all these amazing technology on your website and listen to it in your podcast and go, isn't that awesome? This is great. We just don't see it yet. And every time you sort of hit up OmniPod, hey, when's OmniPod five coming out? They're like, Oh, we don't know yet. It's still going to go through the TGA. When is tandem going to get their remote policy, their mobile app? Oh, we don't know yet. Nobody's got an answer. We only know that the g7 is possibly by the end of the year,
Scott Benner 29:23
yes, or we've been told, you know, it's funny, they really don't know either, like, it's not, it's not like, they're like, just tell them we don't know. Like, I really think they the process is, I hate to say it like this, I think the process is just what it is, and it's not written down anywhere, timelines, that kind of thing. And then, you know, people can give you any, any excuse they want to give you with the time for why it's taking so long, right? Like, for a while, they love to say, Oh, it's covid. Covid has got to slow, you know? And then that ended, and then they say something different, yeah, yeah, covid fault. You can't have a. CGM,
Unknown Speaker 30:00
yeah, and
Christy 30:02
but I do Australia, we do have we don't pay for the Dexcom, so it's free for all type one diabetics. Okay, oh, well, we don't have to pay for a CGM. It's all covered through our Medicare.
Scott Benner 30:16
Is that part of the reason you think I wouldn't? Think so. I
Christy 30:19
don't know. I can't comment on that, because I don't really know whether or not that's part of the reason. But you know, in comparison, I guess we're lucky that it is funded. It's only just recently be funded, been funded for all type one diabetics. So at least we've got, you know, free CGMS. Our pumps are through private health insurance. So you have to have a private health insurance to apply for a pump, except for OmniPod. OmniPod is the standalone OmniPod you can get just as a subscription.
Scott Benner 30:54
Okay, so OmniPod doesn't cost, or it does, it does, yes,
Christy 31:00
it does, but it's but you can get it directly into any contract. You just get it directly from OmniPod, omnipodically private health. I see you get OmniPod and it,
Scott Benner 31:10
it costs about 200 to $400 a month. There's like American dollars,
Christy 31:16
Australian dollars, tripling it or double, I think, for American at the moment.
Scott Benner 31:22
Okay, so if you said 200 for you, it's 400 for me. Yeah, okay. Well, everything costs so much money. I can't believe I'm I feel old Christy saying this, but the prices of things have really gone up recently. So like, Yeah, I'm not stunned anymore. Like $20 now feels like $5 to me. Yeah, yeah. And I used to think of $20 as I still think of it as a lot of money, but I still treat my kids like that. I'm like, this 20, and they're like, 20, yeah.
Christy 31:56
They quite often ask me, Can I just have $20 mom? I'm just gonna go to the shops. I'm like, No, that's too much. You haven't earned $20 What
Scott Benner 32:03
are you gonna do with all that? They're like, I'm gonna get a bottle of water, I think, and I'll lollipop like, oh, wait a minute. I didn't realize. Yeah, upsetting. Well, I mean, we're not gonna speed that up. Obviously, that seems like a problem between you guys in the government, and, yeah,
Christy 32:22
that's right, yeah, just something that we are lacking, that's for sure, especially when we're listening to your podcast and talking about all these amazing technologies. And I'm like, right? I want that. What are we doing with that? Where is that? Where is this? And
Scott Benner 32:37
we just, we're just still waiting. Just continue. I appreciate you talking about it nicely with me instead of the note I got the other day from somebody that said, I have to check my privilege because I have something they don't have. And I was like, Oh my God. Like, I thought this part was over, but okay, I'm like, I feel grateful for things I have. I've said that before. Do you want me to say it before? Every sentence I speak like, like, you know what I mean? Like, you know, I feel
Christy 33:04
incredibly grateful because our insulin doesn't cost half as much as what you guys are paying for insulin if you don't have health care. There is things that I have read on there and go, Wow. Like, people really struggle over there, whereas we don't necessarily have to struggle and fight for insulin. We don't have to struggle and fight for a CGM. We're very fortunate in that way.
Scott Benner 33:27
I also think that people make a mistake when they talk about insurance in America sometimes, like, the people who have it, they'll say, like, I've said it before, like, what does insulin cost me? I think it costs me $20 every time we order. And that doesn't matter how many Arden's like, it doesn't matter like, if Arden's script called for five vials of insulin, it would cost me $20 if it called for 10 vials of insulin, it would cost $20 like, that's kind of the thing. The part you don't stop and talk about is that, you know, round numbers. Through my wife's employment, I think we pay $9,000 a year to insure my family. And then after that, the first $3,000 that gets spent for every individual person comes out of our pocket. And then it covers 80% after that, so nine three. And then if everybody gets sick, 369, 1212, 621, yeah. So I paid $21,000 plus $20 for the insulin this year. And, yeah, you know. And people are like, oh, like, it's free for you. I'm like, Ah, okay,
Christy 34:37
let's just add it up. And it's the same here to get onto a pump. We've got a lot of programs through JDRF, I think they do Medtronic pumps, but it's all income based. We do have one private health insurance company, which is what we use, and they just in. Sure my daughter so I'm not insured. I don't have health insurance. My husband doesn't have health insurance. We use just our Medicare system here in Australia, okay?
Scott Benner 35:07
And we're fortunate
Christy 35:11
enough that that particular insurance we've got for our daughter covers her for the pump, so she's eligible for a pump.
Scott Benner 35:19
Well, that's the other thing. When the year starts over, you know, we have these deductibles, these yearly deductibles. So the calendar rolls over to the next year, and then the first order you get of something you're paying cash for, like, so, and I'm not kidding, like, you know, if a three year supply of pumps or a three month supply of pumps is the first thing that rolls up, you get a bill for like, $1,800 and you're like, Uh, okay. And then, you know, like, you pay that. And you think, all right, I did that. And then Dexcom comes up, and you still have $1,200 left on your your co pay, your deductibles, stuff like, what, I don't even know what the hell it's called. It's not important. They send a bill and I gotta pay it, and then the next thing you know, you're not out of January yet, and you're out $3,000 in cash. And you're like, and then the rest of the year you're covered, and you're like, okay, so that, I always joke with people, like, people are always like that you go to the pharmacy or something like, oh my god, that's so much money. Do you want to buy it? I always go, No, I don't want to buy it, but yes, I'm gonna buy it. And, you know, and they're like, and I was like, but don't worry, I used up my whole deductible today. That's the good I always say, that's the great thing about type one diabetes. You get that out of pocket out of the way very quickly. At least it doesn't nag you all year long. We've
Christy 36:38
got this other awesome thing. At the moment, in Australia, there's a it's called strip supplier. Stripes, yeah, strip supply now all I do is punch it in the computer and they send me exactly what I need. I don't even have to go in and really work it out. It's a monthly subscription. They just send me everything I need and I get it. And because who has time to go to the pharmacy and work all that out. I
Scott Benner 37:01
gotta be honest, I used us med now for a while, and so I just, I really do like, I don't know about punching it into the computer, but I get a text. I get a text or and if I don't, how do I have it set up? I get an email. If I don't reply to the email, they'll call the house. And it's great, because you just literally can't ignore it. And, you know, like, you're like, you're like, Oh, I gotta even sometimes I've heard the phone call and thought, you know, my phone announces, I don't know if people still have home phones or not. I do. I'm old, and it's like, you know, call from us Med, and I'm like, I gotta go answer that email. And you go to the email and you click on it, and I swear to you, like, three clicks later, this stuff's at your front door, and I'm like, This is how it ought to be. This is good stuff.
Christy 37:47
I was first trying to organize what I wanted. And we've got a certain supply that you're allowed to have, and you never know sort of how much you used. How many dexcoms do I have left? How many reservoirs have I got left? How many all the different things? And now with this, I just order it, and it just comes to me each month, and it comes a month in advance, so I'm never behind. I'm never I'm right on top of all my supplies. I've got enough. I don't have to worry about, oh, no, oh, we've left it to the last minute. We need to go and get, you know, Dexcom. We need to go and get some insulin. We need to go and get the cartridges, because I don't have any or, yeah, it always just comes down.
Scott Benner 38:36
You're never really paying attention, organized, yeah, you're never really paying attention till you're like, I have two of these left. Damn. Hold on a second. Although a different kind of counting happened yesterday. Arden's finishing up her sophomore year of college right now. Like it's today. She she told me, today is the last day she's gonna do any work, and then she has a presentation, and then she's done. And I was like, okay, and she goes podcast when she first went, Oh, isn't that crazy? How time, trust me, there are people listening who are like, I read the blog when that kid was like, seven, you know, she said to me, one more pod. And I went, What are you talking about? Are you out of pods? And she goes, No, no, no, no, I have plenty of pods. I went, okay. She goes, one more pod that I'm gonna do, and then you're taking care of this all summer,
Christy 39:28
my daughter quite often sits here and says, Mom, can you just enter it in, please? I don't want to think about it. And I went, yep, okay, pass it over and I'll enter it in. But because with the tandem, because she's still on like it's all tubing. She just sits next to me, and she just doesn't ever look she's like, whatever, yeah, put that in, okay, now compared to two years ago, now we're much more relaxed. We're much more calm.
Scott Benner 39:56
We do a lot more now, except for me, go. To the doctor. I did get the firm feeling though, that my my summer is going to be spent changing CGMS and insulin pumps. She's like, I'm I'm taking a break from everything. Is the vibe I got from her. I was like, okay, yeah, holiday mode for sure, from everything. Oh, I'm gonna get the phone handed to me across the table when food comes out, something like that. Like, Oh, are we eating? Here you go. Yeah, yeah, turns it right back over that
Christy 40:25
we can still do that for them. I mean, they've got this for the rest of their life, so Yeah,
Scott Benner 40:29
honestly, I'm happy to take a little bit away from them, right? No, I agree with you, and I'm happy to do it. And it also won't. It won't last that long, by the way. She's not. I mean, it won't be a month from now and she's still like, Uh oh, my pump needs to be changed. Like, it's not going to go like that, you know. So, um, my job this summer is just to she's a couple little bad diabetes habits that I'm trying to, like, get her away from. I want her to put a new CGM on a little before she takes the old g7 off, like, just to soak it a little bit soaking. Yeah, I can't get her to do that. Yeah, I always forget to do that. And in college, she rides her pump out to the last second or the last unit. And I'm always, and I'm always like, Arden, please. Like, let's not like, you know, she's like, it's fine, it's fine. But she's had a couple of times where she's gone to bed and said, It's fine, and then not it didn't make it, yep, yep. We've had that. And then I'm waking her up and I'm like, you have to get up right now and put a new pump on. And she's like, exhausted. Now I want to say, in fairness to her, somehow Arden ended up going to college for something that I kind of thought was going to be like, not as taxing, and it ended up being worse, somehow, like, she's got a friend becoming a nurse at college. She has a friend becoming a teacher at college. She has a friend in college learning comp sci. And Arden's doing, you know, fashion design, yeah, and her friends are like, you're way busier than we are. Like, like, because, because, when she, when she gets a an assignment that it the assignment isn't like, Hey, sit in this class. I'll explain this code to you. Then you can go home and code a little bit, or what you know, or go read terms for nursing or something like that. Like they get her into a room and they go, Hey, you're gonna make a pattern for this dress. And they literally hang a dress in front of her. And then you have to visually deconstruct the dress. You can't take it apart. You have to make a pattern for it, and then make, then make and remake the dress. Except no one teaches you how to do it. You just have to do it. It's really interesting. Like, like, Arden went to school for fashion design. She'd never really sewn very much, even, okay, and so, like, she goes to these labs, like, like, we'll get like, a call from her, like, the other night, she said it was, like, five o'clock. She calls and she facetimes. I don't, I don't know if people call anybody anymore, so she's FaceTiming all this, and she's, she's eating, and we're like, what are you up to? She goes, I'm gonna finish eating. I'm gonna go pick up Addison. Was a friend of hers. And she's like, and then we gotta go to number nine, and then we gotta make a pair of pants. And I'm like, okay, and then, you know, at two o'clock in the morning last night, like, literally, I saw her. Blood Sugar was super stable. It been very stable for a long time. And I woke up and I was like, I wonder where Arden is, and I open my phone, and she's still in that lab, like at two in the morning. They're they're doing this stuff. And so she's done all these overnights with diabetes, I have to tell you, she may never know it. And Arden uses Iaps right now, but it wouldn't matter if it was, if it was control IQ or OmniPod five or 780, G, whatever she's wearing. These algorithms, they're changing people's lives. I don't even think they know it. You know like you go find a bunch of collegiate type ones pulling all nighters and riding around a six, one, A, 1c, right now, and ask them if they weren't low all the time, or, you know what I mean, like, and Arden's just like not having those problems because of this stuff. Really great.
Christy 44:28
We had OmniPod dash. So Emily decided she didn't want tubes, and she wanted to try the OmniPod Dash. And we tried that, and it was great. The Remote bolusing was great. The no tubes were great. Being a girl, she could wear whatever she wanted to wear, and it was really wonderful. Yeah, and
Scott Benner 44:47
then hormones kicked in. So
Christy 44:51
every night when the hormones would kick in, we were up bolusing and correcting and bolus. Seeing and breathing constantly, and then she would drop at other certain times of the month, she would drop,
Scott Benner 45:07
and because it wasn't catching it,
Christy 45:10
we felt there was a lot of work. We were up late at night. We were It wasn't until two o'clock when it all was stable. And we, you know, we would put a heap of insulin in and just wait for the low, but with tendon, with the T slim that she's got, it does those corrections. And you can, quite often go right, I can go to bed, yeah, like, it's better catch. I'm not putting in too much insulin where she's going to crash incredibly fast. I can just make little corrections, and sometimes I don't even have to do that. Now, the pump just kind of does it itself. And she's sitting in an A 1c of five point H was her last one.
Scott Benner 45:53
That's fantastic. And if OmniPod five was available in Australia, you probably would have gotten it absolutely, absolutely. That's been my point to a couple of the companies when I've talked to them recently, like they have to begin to understand that the algorithm is going to become the most important part of their device. I can make the argument about OmniPod, the tubeless nature of it is really significant to people, and might push some people you know to not say the algorithms like top on their list, but that's what you're that's what you're selling now, yeah, that's what
Christy 46:30
we went for. It was just, it's the algorithm in that T slim. And even Emily started to fight because Mom, I'm going low. It's already cut the insulin out, so I don't have to worry about it too much, or if she's going high the diabetes educators just said, well, we'll do the corrections. We'll just change your correction factor a little bit. And that has made an incredible difference to her being able to manage it in school, to the point where sometimes she's not even really thinking of it because the algorithm, algorithm is doing it for her, yeah, whereas OmniPod just wasn't keeping up. Well, you're
Scott Benner 47:07
using the dash. It's just manual. It's just the dash. It's just running the the basal program that you put in there. The you know, it's not making corrections, it's not cutting basal. And listen the algorithms, they don't catch every low and but, and they don't catch every bad low. I don't want to say that, because that they certainly don't, but nine times out of 10 the low you're having is not nearly as emergent and scary, because the algorithm has been taken away, taken away, taken away insulin the whole time.
Christy 47:41
Yeah, at least you can sit down, she can have a bit of sugar, and she's pumped back up with enough without having a crashing blow. It lets her know beforehand. The Dexcom does. So she just finds it's less management, management with the algorithm, yeah, than it is with OmniPod. She loved OmniPod. She loved the freedom of OmniPod. So we still get OmniPod every now and then she wants to wear a pretty
dress, or she wants to
do something where she didn't want the tube, she will put on an OmniPod for the time being. But she actually asked to go back to the tea slim for the algorithm for me, like at night time when we were on OmniPod, I go to work, they go, you look really tired. And I'm like, No, this is just my face. Now, I had a good night's sleep. I was fine, but this is just what I look like.
Scott Benner 48:37
No, I'm doing great. What are you talking about? It's the best I felt
Unknown Speaker 48:41
in the week, right?
Christy 48:42
What are you talking about? You look tired. It's just the way you look now, the bags are just permanently under the eyes, just just the way you look now.
Scott Benner 48:54
Now, yeah, I, yeah. I say again for, for pump companies listening, you're not selling the 770 G, you're not selling the OmniPod, you're not selling the T, you're selling your algorithm that that's your product. Yeah, so concentrate on it. I had this thought the other day, and this is going to be frustrating to you, because you're you get things later. You think of yourself as the Canada of the other side of the map. And so because they don't get their stuff very timely either. But, yeah, it's, it's pretty much neck and neck, honestly. But what I, what I was thinking the other day as I was was I doing? I think it was outside, pressure washing my house. It's like getting, you know, that molt where you live there. I don't know what you know, but like, in over the winter, we get, like, green stuff stuck to our siding, and you kind of like, go out and pressure wash it off, right? So I'm out there getting soaked, having green stuff bounce back in my face, assuming I'm going to turn into Spider Man eventually, from whatever's going in my mouth. And I'm thinking about my podcast and things I talk about and everything. And I started thinking about AI a lot, and. And I wondered, are we going to see a slowdown in the current algorithms advancements, because are they already ahead doing something else that we don't know they're working on? And if they're not, should they be you know what I mean? Like, Yep, yeah. Like, when am I going to be able to tell the pump what I'm eating, for example. Like, when am I going to be able to say, hey, pump, this is a cheeseburger. It it's just going to be a communication, yeah? Like, is that? Is that going to happen? Like, you know, and wouldn't that be, for some people, more accurate than them, half assed guess, and how many carbs are in something, or forgetting that it's greasy, or like that kind of thing, like, like, I wonder if that's not something somebody's thinking about, and I think they should be.
Christy 50:52
It kind of reminds me of Siri, I suppose. Hey, Siri, how many carbs are in this? That's constantly our question. Siri, how many carbs are in this? And she might tell us, and then we sort of go, Well, we're going to have a bit more than that. Actually, she's talking to me now.
Scott Benner 51:06
Do you think that Siri has friends and in her downtime, she's like, Yo this Kristen and her family, they eat like, seem like. It's all they do. That's all they talk about with me. It's just food.
Unknown Speaker 51:18
Facebook,
Christy 51:19
how it listens to you. It listens to you. It just comes up with recipes and things like that, because it's all listening to me.
Scott Benner 51:26
I suppose these only talk about whatever.
Christy 51:31
I'm never asking for directions. What do I need here? What do I need there?
Scott Benner 51:36
She's never once asked me about anything fun or going on vacation or anything like that.
Christy 51:41
No, I just want to know the food. Let me know the food I actually have got on my fridge. I did up a all Emily's favorite foods. How many carbs are in the foods? So it's on the fridge, and I don't have to ask her anymore. Hey,
Scott Benner 51:57
I need to sneak in my my I have standard Australian questions, have you ever sat on a toilet and there's been a spider or a snake in it? No frogs, though, frogs. Okay, fair enough. Green Tree frogs. Not a snake, not
Christy 52:11
a spider, but, oh, spiders are everywhere. We name them in our house. No, but frogs. Green Tree frogs.
Scott Benner 52:18
Green Tree Frogs are common. Yes, in the toilet. Common, do you ever get to the point where you're just like, I'm not taking this out, or I'm just flushing it down the toilet, taking what do you take it out? Or what do you do with it once you say it? Frog, yeah, the frog, well, you
Christy 52:34
just got a flush. I mean, if you've already sat on it there and and go and get anything out. We just, you can flush it, or you just, I've got two toilets. I can just go to the other. This is sometimes in the outback, yeah, being camping, and the whole shed has been full of frogs, therefore you I just don't even use that particular toilet. Okay, it's way out. We find a tree,
Scott Benner 53:03
it's safer to find a tree. If I found a tree, I'd be able to get farther away from these frogs than if I went to the toilet. I gotcha, hey, they're more frightening
Christy 53:11
the frogs in the toilet. If I'm honest, I'd rather sit on a spider.
Scott Benner 53:16
I don't know how do I even make that adjustment in my mind, but okay, and snakes everywhere, crawling across the street. I walk outside. They're on my patio. They're like birds in America. Yes or No, no, no, where. Where are they at no so they're
Christy 53:33
out in the bush. They're hiding underneath your rocks and things like that. You do have to be careful. You can be walking through a paddock, and all of a sudden there's a nice brown state there. I have not encountered one. I've only ever encountered a few black stakes, which are pretty quiet, and they tend to move away from you before you
Scott Benner 53:52
are anywhere near them. The brown one can hurt you.
Christy 53:55
The brown one's nasty. He's mean, yeah, yeah. He's more aggressive. The black ones, not so much
Scott Benner 54:01
just aggressive or poison both. Both are very poisonous, even the black everything
Christy 54:08
we've got, I'm more afraid of a crocodile in Australia than I am of a snake or a spine or anything like that. Those factors jump up out of the water and get you.
Scott Benner 54:18
Here's my question. In the last five years, how many stories have you heard about people being drug under by a crocodile and taken? Oh, over under 10. Under 10,
Christy 54:32
sometimes this little dog, like people, are walking their dogs so the dog gets taken.
But I just, I don't like
the thought of the crocodile like he's in the land, he's in the sea, and he's just got his little beady eyes looking at you from the top of the water. And I don't know if anybody's ever been to Australia zoo, or any you watch Steve Irwin's videos, they launch up out of the water. I. I've seen them launch, so I'm just not even going to go near water's edge in North, in North Queensland.
Speaker 3 55:09
Gotcha, yeah. Oh, listen, they're dinosaurs. They're dinosaurs living with you. They are. Yeah, no, no. It's very upsetting. I don't huge, oh, what? 1012, feet? I don't
Scott Benner 55:23
know. Oh, feet. Oh, God, you live in one of those places. Hold on a second. Let me just figure it out. How many meters is 12 feet? Let's see if I was anywhere close to being correct. Uh, three and a half meters. Yeah, they can be bigger than that. Bigger than that, okay, yeah. And why don't you leave? Tell me that, like, pack up those. I mean, you got enough kids. They could pull they could pull the car if you don't have one. There's so many of them. I
Christy 55:50
live in the bush. We live in a in a small country town in Queensland. We are further away from the crocodiles. But recently we went on a holiday up to North Queensland, which is 11 hours drive from where we live, up to North Queensland, and, yeah, my husband and my daughter walking along the beach, and I just waited back. I went, No, thank you. Yeah,
Scott Benner 56:14
I'll be here for whichever one of you lives, and then we'll go home together. Yeah,
Christy 56:19
we even got in a boat, did the crocodile tour, and I was freaking out sitting in the middle, and Emily's like, this is great. This is great. And then all of a sudden, like, a pump starts alarming, and I'm like, Just be quiet.
Scott Benner 56:33
I can hear that. I will throw you in the water,
Christy 56:38
because I don't want it to come anywhere near us.
Scott Benner 56:42
Do you think you'd which parent do you think you'd be? Have you seen the video online? I'm gonna make my point. Have you seen the video online where the guy's walking out of his home? He's got, like, one of those doorbell cameras, so you're getting to see it, by the way. Do people not know that all a doorbell camera is gonna do is catch you falling it's not gonna catch anybody breaking into your house. But so the guy's coming out. I mean, he's a guy. He's in his 30s, you know what? I mean, prime of his life. He's holding his son, the kids, three, maybe three, I'm gonna guess. He takes a step down his first step, and a raccoon just grabs his pant leg and starts going crazy. Now listen, that would scare me. I'm not gonna say otherwise. He takes a couple of aggressive steps forward, then he throws the kid on the ground. I mean, he really throws the kid. I think the kid's Okay, so it's okay to laugh about. He was like, just dispensed of that child when his life was in danger. He did not think about that kid anymore. He was just like, self preserving. Oh, my God. He was like, this thing's in my way.
Christy 57:53
I'm not taking it. I take them first.
Scott Benner 57:58
Then he calls for his wife, like a, I don't want to say like a little boy, but he did called for his wife like she was his mom, and and then, um, and then the, I don't know, the raccoon, takes off, whatever, but it's the way he throws the kid that makes me wonder. Like, we all think we're gonna be that person who's gonna just, like, save the child, step up, you know, blah, blah, blah. But I think if that crocodile came, you'd be like, listen to me, kid,
Christy 58:25
I would have been out of Yeah, I think I would have just turned the boat around if anybody fell in. Too bad.
Scott Benner 58:32
I gotta go. Hold on tight. You go out and we're not coming back for it.
Christy 58:35
He was huge, just sitting there looking at me, you know,
Scott Benner 58:40
oh my god. Anyway, if you haven't seen the video of the man in the raccoon throwing his kid, please find it and just enjoy yourself and think, Well, the kid's fine, don't worry about it. But I mean, man, he just, he just tossed that kid aside like a bag of just like
Christy 58:59
he's yours. You take him
Scott Benner 59:00
for the rest of your life. You're, you're, you're a woman Christy, you're married. You know, for the rest of your life, the guy says anything, you pause, and you go, Hey, remember the time you threw our kid? Right? I mean, do you ever win another argument if you're that guy? I don't think so.
Christy 59:19
No, you've already given up the child.
Scott Benner 59:22
You can't act dominant sexually anymore, like you can't do anything you because you'll be thinking, like, oh, screaming
Christy 59:28
for his wife,
Unknown Speaker 59:29
exactly,
Unknown Speaker 59:32
where's the man.
Scott Benner 59:33
He's like, You know what I want to try tonight? You're like, what bitch boy, what do you want to do tonight? Remember when you threw our kid and cried. Oh my god, fantastic, by the way, we, um, we did a disservice to this podcast episode. You guys love to curse, and I didn't curse much in this one at all. I'm sorry for that.
Christy 59:53
I know I I've actually been holding it in too. I'm too scared to say the s or something like
Scott Benner 59:59
that. Yeah, if you would have went to other words, we could have avoided the s, yeah, I
Christy 1:00:04
Yeah. I work with children, so I can hold it in when I
Scott Benner 1:00:11
need to. It was done very well, because I imagine it's the first word that comes to mind whenever you're starting a sentence. Yes, yeah. Why is that? By the way, I'm not making this up. Am I like, cursing is like a, like, a national pastime? Yeah, it's very
Christy 1:00:25
casual. It's very over in Australia. I quite often say to my husband, really, like, really, is that what you just said? You go, yes, well, it is, but, you know, yeah, no, it's quite often used. A lot of Aussies tend to use it.
Scott Benner 1:00:44
Yeah, it's very liberal. I swear to God, I
Christy 1:00:48
cry. Son just turned 21 and he feels like he can swear in front of me now
Scott Benner 1:00:52
21 oh god, you you made it far. I curse like I love cursing. I would fit so well, except for the snake, the snakes and the spiders and whatever else you got. I would never come to Australia. I just want to say this right now, you'd have to put me in an acrylic box with air holes if I'm coming there. But
Christy 1:01:10
it's not that scary. It's quite surprising how everybody thinks it's so scary. It's really not. I know we've got great white sharks in the ocean and we've got crocodiles and we've got snakes and we've got spiders, but we all we survive.
Scott Benner 1:01:25
I mean, I know that, but somebody doesn't, and I don't need it being me. You know what I'm saying? Yeah, I want to be clear. I also probably wouldn't go to West Texas, Arizona. I mean, I can make a long list of places I'm not going for you. I got invited to speak in Montana. I'm already looking for snake boots. Like, good guy, did they? I don't even know if they have snakes, but like, I, you know, and a bear, like, I'm gonna need a bear gun. There's gotta be a gun you can kill a bear with, right? Like, I need a bear gun and Snake boots. That
Christy 1:01:53
would frighten me, too. The bears would frighten me. After watching that movie with Leonardo DiCaprio, the bears would definitely scare me. Oh,
Scott Benner 1:02:01
The Revenant. Yes, that's one. I thought you were gonna say cocaine bear. I was gonna say Christy. I don't think that was real.
Christy 1:02:12
No, no, not that one. No, no, definitely The Revenant. When the bear attacks him, because I don't really watch horror movies or anything like that, that bear was horrible.
Scott Benner 1:02:22
Yeah. Well, the bear doesn't care if you're alive or not when it's eating you.
Christy 1:02:26
No, yeah, just rips you apart with those big claws, right?
Scott Benner 1:02:30
Some animals have the common courtesy to break your neck or something before they like the crocodile, will break your neck
Christy 1:02:36
and, oh no, the crocodile takes you down to the bottom of the river alive and death rolls you, yeah,
Scott Benner 1:02:44
but that'll break your neck, is what I'm saying. The bear was eating him, the Be it the bear was eating him for hours. Wasn't
Christy 1:02:53
bears, you can, you can have those look like
Scott Benner 1:02:55
if you're being eaten by a bear, you gotta yell, don't start with my foot. I I mean, if we're doing this, come up top,
Christy 1:03:08
get it over and done with, Oh, my goodness,
Scott Benner 1:03:09
I didn't know this would turn into a bear attack. Uh, podcast, but here we are. Okay. What about diabetes? Haven't we talked about that we should
Christy 1:03:17
have? Oh, the fear that it puts around the rest of you health issues.
Scott Benner 1:03:21
So, okay, you
Christy 1:03:23
want to go to the doctor these days for myself, I get terrified after having diabetes come thrown out of nowhere at me. I actually have a lot of anxiety going to the doctor personally,
Scott Benner 1:03:37
health concerns. Yes, you so now you're, you're pretty sure, or at least incredibly worried, that something's going to go wrong with you absolutely.
Christy 1:03:47
I I'm always thinking that I the worst. If I go to the doctor, I'm going to get out of the blue it's going to be something that's going to be the worst. I'll go for a sinus thing, and I'll think I've got, you know, some sort of tumor or something, because I think the diabetes come so far left field. We had no idea what diabetes was. There's no autoimmune no one in the family has it. Yeah, there's nothing like that. And we've taken Emily to the doctor for
a urinary tract infection and ended up
coming home with type one diabetes, right? And it's just terrified me now to go to the doctor thinking that something else is going to be thrown at me from left field.
Scott Benner 1:04:33
I think that, you know, we have a lot of things thrown at us, and I don't know
Christy 1:04:40
they say the universe only gives you what you can handle. Yeah, I get scared for myself because I need to we I need to be around to look after my daughter.
Scott Benner 1:04:50
So the anxiety of me not being well
Christy 1:04:56
is really starting to play. A major role in my life. I've had to go and see a psychologist just for that.
Scott Benner 1:05:05
Do you curse during the psychology visits? Sometimes, yeah, I would too, that's why I asked. But so let me ask a question here, prior to the type one diagnosis, were you generally healthy people, you'd end up at the doctors very often.
Christy 1:05:22
No, not very often. I started to worry about my health. I was a bit overweight, and so I was worried about my health, and I had high blood pressure, but nothing overly concerning. You know, we if you went to the doctor for anything, you just go and get it checked out. Just going to go and get this checked out. Now, I don't necessarily want to go and get something checked out, because I think that I'm going to come out with something worse than what I went in with. Christy. Let
Scott Benner 1:05:49
me help you a little bit. That's backwards. Okay, you can't think like that. And isn't it interesting, being overweight and having high blood pressure is serious, and yet it's exp you think of it as reasonably expected. So when someone says it to you go, Okay, well, what's the thing I do for that then? And but the diabetes was so, like you said, out of left field, that now it feels like anything could happen. Now it feels like it could just spring up out of the water at you and snatch you up. Yeah, something
Christy 1:06:21
like, oh, it won't happen to me. I always think the complete opposite now that could happen to us, because this happened to us. So you know that could
Scott Benner 1:06:34
happen. You completely transitioned from one mindset to the other very quickly. Yeah, isn't that interesting?
Christy 1:06:40
Yeah, it really does worry me. Now, for any little thing, I get really worked up. Going to the doctors really works me up. Now,
Scott Benner 1:06:49
I find a lot of comfort in this thought. I hope it helps you. Whatever's going to happen is probably going to happen. So I've
Christy 1:07:00
got, like, things everywhere, all over my house that say, you know, things happen for a reason, and it's gonna happen, it's gonna happen,
Scott Benner 1:07:07
but I don't want it to and it can't listen. I want to be clear. I don't think they happen for a reason, but I think they're gonna happen like, I think there's just the natural progression of things like, and I've had, listen, no lie. I'm 52 if I sit here and try to be thoughtful about this, I had to have a surgery on my toe, my toe because I couldn't walk. My knee had to be cleaned out. My shoulder had to be repaired. I had to have my appendix out. I've had, I have a couple of crowns in my mouth, like my teeth are, you know, needed to be replaced. I mean, I carried weight that I couldn't figure out. Like there's no reason, rhyme or reason behind of it. I'm working through my gut health issues right now with somebody, which I haven't talked about on the podcast yet, because I'm not done with the process, but, and every time I go to do something like, I'm like, oh my god, I'm hurt again, or this is happening, and it feels so like this is not what you were promised, but you realize then nobody really promised you this, and I'm still moving like, This is amazing. Like, yeah, I lost six months fixing up my knee, and I limped for three months after I got my toe fixed and like that kind of stuff. And and my shoulder surgery was maybe one of the more painful things I've ever physically been through in my life, right? But the alternative is, what, you know, what I mean, like, I, if my knee didn't work and my shoulder didn't work, a bear would have eaten me 20 years ago, if it was 100 years ago. So, yeah, I'm just, you know, I'm all about find it, face it, get past it, and if it kills you, whatever that was gonna happen anyway. I
Christy 1:08:51
had to really struggle with that,
Speaker 2 1:08:54
and with seeing somebody has helped with that. That's good, same mindset,
Christy 1:09:01
you know, I've just got to deal with it, and we're going to take it one step at a time. And if this happens, then we'll do this or but, and my husband is amazing with he's so it's not casual. Casual is not the right word. He
Scott Benner 1:09:21
is very calm.
Christy 1:09:22
If things happen, we're just going to roll with it, especially medically.
Scott Benner 1:09:27
I don't know your husband, he's clearly got the most boy attitude I've ever heard in my life. He's like, hey, those kids aren't mine. I'll take them. Don't worry about it. Like, you know, like, practical, yeah,
Christy 1:09:37
yeah. Just,
Speaker 2 1:09:38
he's just so real about things. I
Christy 1:09:42
think he's got a very realistic view on everything. Me, I've got that emotional view being female. We just do that. I think look into things too much. But yeah, he's always supported me. He's like, You need to go to the doctor and get that. Checked,
Scott Benner 1:10:00
lovely. So, yeah, good boy, listen there.
Christy 1:10:03
I just, you know, and it doesn't help. When the doctor goes, we just need to see where the bleeding is coming from. Great. Yeah, is there a cancer in your family? And I go, what? Why did you
Scott Benner 1:10:16
and then, where? And then, and then, where was the bleeding coming from, by the way, yeah. So I just have, I
Christy 1:10:24
had the weight loss surgery as well. So, yeah, I had that done in 2020, and so there was no, no bleeding from there, but I was losing iron. I wasn't absorbing iron, yeah. So he said, You must be bleeding from somewhere. Is there cancer? Is there this?
Scott Benner 1:10:42
And he couldn't just say we took out a bit of your stomach, and maybe you're just not absorbing iron as well anymore. Yeah,
Christy 1:10:47
that's right, it just turned out to just be the surgery. There wasn't anything else I went for every test under the sun, and there wasn't everything,
anything else, but it was the whole
process, and I was terrified. Yeah,
Scott Benner 1:11:01
of course, I had that happen to me too. By the way, my iron was low and they're like, you have cancer? I'm like, oh, okay, I don't think I do, but I guess we could check Yeah. How did the weight loss surgery work for you? Did it do what you hoped for to do? Yeah,
Christy 1:11:13
lost 60 kilos, and I've kept it off now for for a long time, I can eat anything. I've been very fortunate. I followed all the instructions given to me by the surgeon, and I've managed to keep it all off. And I can, I can eat my actual the rest of my bloods are all great. I'm just not absorbing enough iron.
Unknown Speaker 1:11:39
Holy hell, you. You lost 132
Scott Benner 1:11:41
pounds. Is that what? That's what it is, yeah, like a whole person. I'll be damned, that's crazy. How tall are you? Yeah, I
Christy 1:11:51
can get up off the floor easier. Now.
Scott Benner 1:11:54
What are you doing on the floor? Oh,
Christy 1:11:57
I work with children. Oh, okay, yeah, constantly,
Scott Benner 1:12:00
like, down there level, wow, wow. That's crazy good for you. Now, do you? Can I ask you? Do you look now at everybody using GLP medications and think, god damn it, I probably could have just done that, if only they were available a couple of years sooner,
Christy 1:12:18
sometimes that I actually have a needle phobia myself. If people are injecting ozempic or something like that, I think I'd rather the weight loss surgery.
Scott Benner 1:12:29
No kidding, that's interesting.
Christy 1:12:33
Very big needle phobia. So I had to get over that pretty quick. Well, for Emily, I can Yeah, you're
Scott Benner 1:12:39
a bit of a pleasant paradox. Christy, which I would, by the way, call your episode pleasant paradox, if I wasn't already going to call it. Sally sells seashells. Yeah, that's what I'm calling it, actually. So I have to have a way to explain this to people. The which is still happening, by the way, I just haven't brought it up yet. I also noticed, the less I talk about it, the fewer S's you use, which isn't that crazy conscious of it now? Well, now that I realize how how that works, I think I'm just gonna start when I'm talking to people, I'm gonna say things like, you should send me $5 and see if it starts happening. If, like, just $5 bills just started showing up. I'm like, Oh, I was wasting my time telling them about other stuff. All right, cool. Well, listen, I really appreciate you doing this with me. It's got to be after midnight there. You have to go to sleep and take care of 43 children tomorrow. So yeah, let me, let me, let you go and say thank you. I really do appreciate you taking the time coming and sticking up for people in Australia, saying, Don't forget about us, when you're making your stuff, get it over here. It would be nice if they fought a little harder for you at some of these companies, huh? Yeah,
Christy 1:13:47
absolutely. Just be on par with some of the technology would be amazing. Yeah,
Scott Benner 1:13:54
just because you have a frog in your toilet doesn't mean you don't deserve good health care. Dolls. That should be a t shirt. You should make a t shirt that says, just because I have a frog in my toilet doesn't mean I don't want your blah, blah, blah, then send it off to the company. You make somebody laugh so hard they put some effort into it for you, probably, yeah. All right. Christy, thank you so much. Can you hold on one second for me? Yeah? Thank you. Thank you.
A huge thank you to one of today's sponsors, gevok, glucagon. Find out more about gvoke hypopen at gvoke glucagon.com, forward slash, juicebox. You spell that, G, V, O, k, e, g, l, U, C, A, G, o, n.com, forward slash juicebox. Today's episode was sponsored by Medtronic diabetes, and Earlier you heard from Maddie, who shared with us what finding Medtronic meant for her. Learn more about hyperglycemia at Medtronic. Chronic diabetes.com/hyper, I can't thank you enough for listening. Please make sure you're subscribed, you're following in your audio app. I'll be back tomorrow with another episode of The juicebox podcast. If you or a loved one was just diagnosed with type one diabetes and you're looking for some fresh perspective. The bold beginning series from the juicebox podcast is a terrific place to start. That series is with myself and Jenny Smith. Jenny is a CD CES, a registered dietitian and a type one for over 35 years, and in the bowl beginning series, Jenny and I are going to answer the questions that most people have after a type one diabetes diagnosis. The series begins at episode 698 in your podcast player, or you can go to juicebox podcast.com and click on bold beginnings in the menu. The episode you just heard was professionally edited by wrong way recording, wrongwayrecording.com you.
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