#1247 Service with a Smile
Sarah is the mother of a child with type 1 diabetes. We discuss her daughter's diagnosis, her father's volunteer work with the Red Cross and his battle with cancer, highlighting family resilience.
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Scott Benner 0:00
Hello friends and welcome to episode 1247 of the Juicebox Podcast.
Okay, we're going to talk to Sarah today. She's the mother of a child with type one diabetes. We're going to talk about that but we also talk a fair amount about her father, and all the wonderful service that he put into the world. Nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. When you place your first order for ag one with my link, you'll get five free travel packs and a free year supply of vitamin D. Drink ag one.com/juice box. If you're looking for community around type one diabetes, check out the Juicebox Podcast private Facebook group Juicebox Podcast type one diabetes, but everybody is welcome type one type two gestational loved ones. It doesn't matter to me. If you're impacted by diabetes, and you're looking for support, comfort or community check out Juicebox Podcast type one diabetes on Facebook. Kids it's summertime and what a better time to hold close to you what is dear and I'm talking about quality soft and comfortable clothing from cozy earth.com Save 30% off your entire order with the offer code juice box at checkout at cozy earth.com This show is sponsored today by the glucagon that my daughter carries G voc hypo penne Find out more at G voc glucagon.com forward slash juicebox. This episode of The Juicebox Podcast is sponsored by the ever since CGM ever since is going to let you break away from some of the CGM norms you may be accustomed to no more weekly or bi weekly hassles of sensor changes. Never again, will you be able to accidentally bump your sensor off. You won't have to carry around CGM supplies and worrying about your adhesive lasting. Well that's the thing of the past. Ever since cgm.com/juicebox.
Sarah 2:14
Hi, my name is Sarah, and I'm from Vancouver, and up in Canada and my daughter was diagnosed when she was eight years old on January 8 2017, with type one diabetes. And that's where our journey began.
Scott Benner 2:34
How old is she now?
Sarah 2:35
15. She just turned 15 in October.
Scott Benner 2:38
Wow. All she had diabetes then.
Sarah 2:40
We are celebrating her diversity next January in. She'll be six years. It'll be your sixth diversity.
Scott Benner 2:47
You see the only type one in your family? Yeah, she sure
Sarah 2:50
is. She shares she has a grandmother on her father's side, who I think was diagnosed with actually has a Lada because she even find this shocking. She has some other thyroid issues as well. And so my gut instinct is she was initially diagnosed as a type two but my gut tells me that she's she's type one.
Scott Benner 3:12
My gut told me you were from like, I was thinking when you were talking? Yeah, your voice was telling me like Washington, Oregon. And you said Vancouver. I was like I was very close. I felt good about that. Yeah, for
Sarah 3:24
sure. West Coast. Yeah, yeah. But no, I'm a Canadian girl. Born born and raised.
Scott Benner 3:30
Okay, because your last name does not make me think Canada. No, it doesn't does it
Sarah 3:37
soaks my my dad immigrated or my dad's family immigrated from Eastern Europe during the Bolshevik Revolution that makes more sense to Canada.
Scott Benner 3:46
For sure was there wasn't a nice bridge back then they still had to get on a boat or a plane, right?
Sarah 3:51
I think so i think i think was a boat. I think they came over by boat. And they actually landed in New York City where they were rejected because they were Jewish. They came. The boat was then sent to Montreal, where they were rejected again, nobody wanted them where they were sent back to a different port in New York State somewhere. And then I think they eventually found their way like I think it was like Halifax or somewhere like that. Nobody wanted them because they were Jewish and from Eastern Europe. At that time, it was like back in the 1800s. So it was pretty. It was pretty raw back then.
Scott Benner 4:24
So go live in trees. Yeah, geez. Wow. Well, that was pretty. It was a lot. Yeah, you've grown up in the WB CW Television capital of the world. They make so many of our bad television shows in Vancouver. Oh
Sarah 4:38
1,000% Yeah, absolutely. Yeah, we've got them everywhere. We've got one studio in particular that has studio space, and they're buying up land like crazy. And they just make everything here. Yeah, and our local. We live just outside of Vancouver but our local town hall. The yellow one is used in so many movies. and better super cheesy.
Scott Benner 5:01
Ya know anything you watch on television that when you share with other person you say it like this. I liked the flash. Yeah, wait, yeah, they make that in Vancouver. If you find yourself embarrassing, you're saying it out loud. It was made Vancouver. That's exactly. That's as Canadian as you get, by the way with the Sure was. That was good. Yeah. So let's say you're on the podcast today because you're the parent of a child with type one. But you guys have like, more of a kind of crazy medical story. So let's pick through it a little bit and try to find it. Okay. Yeah, you bet. Yeah. So your daughter six years ago presents How?
Sarah 5:35
Yeah, actually, we caught it really early, which was really fantastic. I guess. So she was we'd had a typical day. And she we had gone into Vancouver, we were saw family and came home and I was making dinner. And I was on my own. And she came into the, into the kitchen and was drinking a glass of water. And she fainted in the kitchen. Right in front of me. She just dropped. Yeah. So she had always kind of been a kid that got hangry. And I was like, oh, that's strange. You know, like I saw, I automatically assume maybe, maybe she's just kind of hungry. And I had a low blood sugar, but I scooped her up. And I you know, I did all the things you're not supposed to do when somebody faints, you know, you grab them, and you carry them. You know, I didn't know if she'd hit her head or anything. But she was eight and I was panicking. So I didn't do any of the first aid stuff that night. In hindsight, I probably should have done but whatever she survived. And so I took her to the couch, and I called 911. And I called my mom to come down and stay with my other daughter. And when the paramedics got to the house, they did a you know, their little glance over, did a finger poke, put it in her chart, I didn't really pay I didn't really realize what was happening at that point. And then my mom arrived, and she and I took off to the hospital. She had come back by that point, she was only out for about like, I don't know, 15 seconds maybe. And we had went off to our local hospital, where they made her you know, pee and blood drawn, do all that stuff. And we had some great bedside manner. Joking, super joking. It was awful. And the ER doc came back to us and said, yeah, we're just consulting with your local children's hospital, but we're pretty sure she has type one diabetes. And then she just turned and walked away.
Scott Benner 7:19
Like to go just
Sarah 7:22
just left me with that and then walked away. It was great. But the paramedic was hanging around in the background. And I guess with the finger poke he had done at the house. He came back and he said, he just appeared kind of out of the corner of nowhere. And he said, You know what she's gonna be okay. And there's a great, great resources out there. And there's this camp that you can send her to in the summertime for a week and she'll make lifelong friends and you'll be okay kind of thing. So
Scott Benner 7:52
do you think that that was something that paramedic had diabetes? No,
Sarah 7:57
but it was his last day on the job. So I think he had seen it a bunch of times before,
Scott Benner 8:03
I think, sorry, was he an older person? No,
Sarah 8:07
he was. Yeah, he probably was actually. Yeah, he probably was. Yeah, his blood sugar was 25. So I don't know what that is. I didn't bring my conversion chart. Sorry.
Scott Benner 8:16
Do you want me to look at juicebox podcast.com.
Sarah 8:18
I do all the time. So you should too. Okay. Well, their frequency stuff and everything. I'll just
Scott Benner 8:22
click on the link at the top that says a one cm blood glucose calculator. And then and then I'm going to choose but does that weird thing you use milli milli momos. And then I'll put it in 25. Oh, and a one C of 17.3.
Sarah 8:36
Yeah, holy hell. No, that's the No, that's a one see, sorry, her blood glucose. You gotta go to the other one. The other the other tab that you've got in that in that page?
Scott Benner 8:44
Oh, I'm sorry. That's okay. millimoles of 25 is 450. It's a blood sugar of 450. But by the way, it isn't a 450 blood sugar correlates to an agency of 17.3.
Sarah 8:56
Interesting enough, though. We only had an agency of 8.5.
Scott Benner 9:01
Interesting. Okay, cool. Cool. That's terrible. But But But okay, so it hadn't been that long. She was just very high that day. I think so. Yeah. Slightly disconnected, but still very interesting. When a person passes out, they fall like a tree to the crumble.
Sarah 9:19
She kind of like her bottom part crumbled, but then her top half went heavy. Does that make sense? In a direction? Yes. Well, she kind of fell back. Okay. Ashley. Oh, gosh. She knows she was drinking so maybe it's because her head was kind of back. I don't know
Scott Benner 9:33
what your body followed that direction. Oh, she she tilted her head back. She just shut off.
Sarah 9:38
Yeah, wow. Yeah. Oh, Jesus. Very weird. An eight year old doing that. And right in front of you. And it was like, Oh my god. It was. It was crazy. So other kids. Yeah, I got one and she's totally fine. We put her through trial net. And she's fine.
Scott Benner 9:53
She's older or younger than your type on
Sarah 9:55
younger, two years younger. Yeah.
Scott Benner 9:58
I always feel like so Sometimes, like, once you've seen it, you know, if you're older if it was an older one is sometimes you just like, oh, they'll be fine. But when it's your first one, I don't know how you don't think, oh my god, that kid died. Like, yeah, yeah, right, it must have just your heart must have just jumped right up
Sarah 10:14
in your throat. Well, you know, you get that feeling where you're like, This isn't good. This something's wrong, right? Like, yeah, for the most part, it takes a lot to to rattle me that way. Like, you fall down, you bang your knee, whatever, it's fine. You do that kind of stuff. But when they pass out right in front of you, you're like, oh, shoot, that's not normal.
Scott Benner 10:33
You yelled right to your husband, like lash up the dogs. We gotta go. That kind of thing. No, he wasn't. He wasn't there. Turn on the engine block heater. We gotta go. We gotta go. It's
Sarah 10:43
time to go. No, he was out of town. And he was out of town at the time. And so I was on my own because all things happen. When you're on your
Scott Benner 10:50
own handy, I assume. Let me tell you what, I assume you plan that? You probably
Sarah 10:56
did right. Now it's not together anymore. I don't know. Oh, wait,
Scott Benner 11:01
are you not together? Not anymore. Son of a bitch. Let me tell you a story. Okay, this is the quickest one but you're gonna love this. And if my friend ever hears this, I mean this with love. Okay. A friend of mines. Wife. How do I want to say this? Alright, I'm friends with both of them. He cuts off the tip of his finger at work. Oh, ouch. They sew it back on. It's saved. I don't want you. That's not the story. The story is that it happened about a week before Christmas. And his wife also a friend of mine said to me one time in a tone that I took as being serious. I know he got hurt, so we wouldn't have to help with Christmas. But I don't think she was joking.
Sarah 11:46
Oh my gosh. Like I know
Scott Benner 11:50
she you know what I mean? Like I knew she I know. She didn't think that he went to work one day. And when if I just hack off the tip of my finger right now. I won't have to put up those Christmas lights. I know. She doesn't think that happened. But she had been married long enough and been through enough in her life that she was like he probably did this on purpose. And she wasn't 100% joking. But it's really fun. Anyway, that's what it's like to be married everybody. So good luck, mate. Go Go do it now. Yeah, enjoy the wedding Taylor pictures. You know,
Sarah 12:17
as a side note, it's quite incredible that like the most important decision you make, most of us do it in our 20s Like, what the heck is that about? Like, what
Scott Benner 12:27
were we thinking? He seems okay.
Sarah 12:31
I'll commit my life to Him in my 20s
Scott Benner 12:33
We like let's say movies. Oh, great. That'll help.
Sarah 12:38
Right? Exactly. He doesn't handle stress. Well, neither do I perfect. Yeah, we can both melt down together. Yeah,
Scott Benner 12:44
yeah, we're gonna be a force to be reckoned with while we're crying in the corner when something needs to be done. I take Listen, my wife and I are very different. And I think it's one of the reasons we're still together.
Sarah 12:55
That's great. You need to have her on the podcast. When's that gonna happen? Probably next year. Oh fantastic. I think everyone would love to hear it. Let
Scott Benner 13:03
me say this. Sarah people don't know you and I talked for 20 minutes before we started recording this you are like a super fan of the podcast. If you take insulin or sulfonylureas you are at risk for your blood sugar going too low. You need a safety net when it matters most. Be ready with G voc hypo pen. My daughter carries G voc hypo pen everywhere she goes because it's a ready to use rescue pen for treating very low blood sugar and people with diabetes ages two and above that I trust. Low blood sugar emergencies can happen unexpectedly and they demand quick action. Luckily, G vo Capo pen can be administered in two simple steps even by yourself in certain situations. Show those around you where you store G vo Capo pen and how to use it. They need to know how to use G vo Capo pen before an emergency situation happens. Learn more about why G voc hypo pen is in Ardens diabetes toolkit at G voc glucagon.com/juicebox. G voc shouldn't be used if you have a tumor in the gland on the top of your kidneys called a pheochromocytoma. Or if you have a tumor in your pancreas called an insulinoma. Visit G voc glucagon.com/risk For safety information. And so and so I've now told you a bunch of things no one else knows you could probably get me arrested if you wanted to. And I'm going to tell you one thing while you're being recorded. Sure. My plan for my wife is to have her on first talk about what it was like to have long COVID Oh, interesting. Yeah, because she has it has had it and but I want her to get through it as completely as possible for her to be able to tell a complete story. Fair enough. Then after she's been introduced to everybody. I think the next time she comes on, I want to talk about artists diagnosis day from both of our perspectives because I guarantee you we Both remember a lot of it differently. Oh, 1,000% Yeah, so I wouldn't I wouldn't do that with her first. She's lovely, obviously. I'm sure. But you know, not funny like me. So yeah, I was
Sarah 15:11
gonna ask, Is she more like introverted? Because you're definitely more extroverted? Yeah,
Scott Benner 15:15
she for sure is. Yeah, yeah. million percent for sure. So like, I don't even know, like, she'll be super serious, but then she'll lighten up. I can pretty much see how it's gonna go. And then she's gonna say, really? stuff about me and I, it's okay, I've said it about myself before but like, I don't mean like being shady about me. Like, she's going to tell you stuff that like you're going to be like, Oh, he's like a real person. And I would guess I am. So yeah, looking forward to
Sarah 15:40
that. Anyway, and he leaves the toilet seat up every time he leaves the bathroom.
Scott Benner 15:44
I'm a good toilet seat guy. Great. Yeah. And I don't I don't do that. I actually like, here's one of the things I'm gonna say. I'm a great guy. Yeah, you can tell it doesn't matter. It doesn't matter. Listen, like if I said to you, Sarah, who do you think is help people with type one diabetes? The most of anybody you've ever met? Is it me? Yeah, you would think that would buy me some latitude with my wife? Don't you know, doesn't matter. This goes back to what I said before. I said a long time ago, somewhere right now. There's the kid of Tom Brady. And Tom Brady is handing him his cereal. And that kid doesn't think oh my god, one of the best quarterbacks ever just gave me my breakfast. He thinks, Yo, man, there's too much milk in this, you're gonna do it. Look what you just did. So it doesn't matter. It doesn't matter. Like I mean, this, this, is this gonna sound sad. It doesn't know. You can't? Oh, god, there's no good way to say this. I don't think you can be a perfect enough person in a marriage, for the spouse to really fully recognize that about you. Because you're always going to be seeing the things that are wrong. Yeah, of course. And you're so comfortable with that person that you're willing to like, you know, say the terrible stuff to them. You can't say to somebody else, or when you're feeling bad, you can take it out on them or like that whole thing happens. It's very common in our relationship. But you know, I don't know I just think somewhere like somebody want to like a, I don't know a Medal of Freedom or a piece of metal. What is that piece metal called? The What the hell's are called?
Sarah 17:21
Yeah, isn't it the blue heart or Purple Heart? Or you got that way? Wrong? That's not what I'm thinking of at all. It doesn't I'm also not American. So I don't know what you're talking. Oh, that's
Scott Benner 17:27
right. You're from Canada? Yeah. Yeah. Well, whatever. Like, whatever the the Canadian excellence is? Sure. You know, what are they? Oh, my God, they give it away the Nobel Peace Prize. You don't know what they know about? How did I know? I don't
Sarah 17:39
know. I thought you're referring to some American military thing. You gotta say International, then I can help you. Sorry. I was sorry. My
Scott Benner 17:45
Okay. Long way to say I think that somebody won the Nobel Peace Prize this year and got home and someone else looked at them and said, I can't believe you didn't do these dishes. You're a piece of my mom was right. I guess he
Sarah 18:02
Oh, that's true, though. It's true. And you know what it act that is in a sideways a bit of a tie in for, like, part of the diagnosis story is my dad did a ton of volunteer work international disaster relief work with the Red Cross. Wow. And he still came home. And he was he was, you know, my mum. And he just carried on as normal. And he came home and he was like, would go on the speaking tours, talking about all of the International disaster stuff he was doing or did or who he saw and what he did, and all that kind of stuff. And my mom was like, you know, could you just clean up the kitchen? Like it's not my job your home now?
Scott Benner 18:40
Margaret, I'm saving the world. Your balls are two inches longer than they were when I met you. Oh, wait, why? How'd that happen? I saved people I did I swear to God, I just did it at work just now.
Sarah 18:53
I just did it. Exactly.
Scott Benner 18:56
I know, please, I'm sure my wife feels the exact same way. And she's right, by the way. Like, I definitely got upset about something last night where I was like, Why did I even care about that? Girl has been with me since she was 20 years old. And I was like, just take? Yeah. She's like, don't say that to me. And I was like, Don't you yell at me? God, anyway, then this morning, you're just like, it's fine. Doesn't matter. That's the key, by the way, is you can come back around the other side of it. You didn't hang out long enough Sarah to find out. Maybe that wasn't your decision. Maybe it was I'm not sure. But eventually, you come back around the other side of it. And I don't like that popular media makes that look like giving up? Because I don't think I don't think that's true. No, like when you get to the part when you're in your 40s and your 50s and you're just like, yeah, that's my wife. She does. That's my husband. That's how he is like, it's all good. We love each other. We built this whole family together. This has all been terrific. I can't wait. I'm gonna live this thing out right? popular media makes it feel like you've given up because you're not trying to be super freakin happy all day long. And I don't know how to explain to any of you. That isn't Another reality that exists.
Sarah 20:00
No, it's not like yeah, you're not happy all the time anyways, you're
Scott Benner 20:04
not going to be happy all the time. I don't know how we got down this road. I'm sorry for that. Let's get back off of it again. Kids diagnosed Canada. So I should ask you regular an MPH or did they actually do? Yeah. Okay. Yeah,
Sarah 20:16
you knew. So yeah, we did the regular and mph and then she had lever mirror at night actually, if I remember correctly if you're on lever mirror at night, so we had three pins floating around at the time and then she she got him, you know, came home with a meter. I think I caught her on the Dexcom. So she was diagnosed in January. I think I got her on the Dexcom in August was a G five. G five. Okay. That was that was good. That was huge. You're
Scott Benner 20:41
married at this point? Yeah. Okay. This is the diagnosis. I'm sorry to say this Allah. Does the diagnosis have anything to do with the dissolution of your marriage?
Sarah 20:49
Oh, great question. So no, we were already falling apart. It was already falling apart. So my dad, my dad was diagnosed in 2009 with prostate cancer. And then in 2013, with multiple myeloma. He was a first responder. He worked for the Red Cross as a volunteer and his retirement. And he went down after the September 11 attacks. Oh my gosh, yeah. He was working for the Red Cross the International Red Cross the American Red Cross, at Ground Zero ground
Scott Benner 21:18
zero and that, and he got cancer after that. Yeah, like so many so many people did. Yeah,
Sarah 21:24
exactly. Yeah, he had three different posts when he was there he was, he was really, really, really good with people like you. And like and and, and sourcing out people. So he was put in charge of local disaster volunteers. So he would kind of organize people to do certain jobs. So one of the things was I can't remember the exact context of it. But there was a ceremony for some of the victims where they had to where they were presented with military flags, but they were all folded properly, and then presented, okay. And he had to organize the folding of the flags. But there was like,
Scott Benner 21:59
this episode of The Juicebox Podcast is sponsored by the only six month were implantable CGM on the market. And it's very unique. So you go into an office, it's I've actually seen an insertion done online like a live one like, well, they recorded the entire videos less than eight minutes long. And they're talking most of the time, the insertion took no time at all right? So you go into the office, they insert the sensor, now it's in there and working for six months, you go back six months later, they pop out that one, put it in another one, so two office visits a year to get really accurate and consistent CGM data that's neither here nor there for what I'm trying to say. So this thing's under your skin, right. And you then wear a transmitter overtop of it. Transmitters got this nice, gentle silicone adhesive that you change daily, so very little chance of having skin irritations. That's a plus. So you put the transmitter on it talks to your phone app tells you your blood sugar, your your alert, show arms, etc. But if you want to be discreet, for some reason, you take the transmitter off, just slip comes right off. No, like, you know, not like peeling at or having to rub off at he's just kind of pops right off the silicone stuff really cool. You'll say it. And now you're ready for your big day. Whatever that day is, it could be a prom, or a wedding or just a moment when you don't want something hanging on your arm. The ever sent CGM allows you to do that without wasting a sensor because you just take the transmitter off. And then when you're ready to use it again, you pop it back on, maybe you just want to take a shower without rocking a sensor with a bar of soap. Just remove the transmitter and put it back on when you're ready. Ever since cgm.com/juicebox, you really should check it out.
Sarah 23:44
I want to say like 4000 flags that had to be folded. So he had to find the space, he had to find the people. And he had to make sure that they were all fed and watered. And then all of these flags were folded in the appropriate manner in military style. And done in in timeline. And so he was in charge of putting all that together at one point. And then he was also worked in supporting the food allocation for the workers and the volunteers are at different spots. So he was out at the kill site. It was Staten Island, where they took all the debris
Scott Benner 24:16
making. I don't remember it's so low now. Yeah.
Sarah 24:19
So he was in and out of there making sure people were fed properly. But so he was up and down that that region a second and all those fumes of all the debris that was going to be placed over there or wherever it was placed. And then he was also down at the main respite center at ground 02.
Scott Benner 24:37
So did it did the cancer take his life or is he with us?
Sarah 24:41
No, he's not with us anymore. So yeah, eventually he had sort of three rounds of multiple myeloma, if you will, it kind of went away for a bit and then it came back and then it went away. And then he kind of tapped out with how much the type of treatment that they could give him and he did some sort of an experimental treatment the last round and his numbers were As a cancer numbers were actually quite good. But the prostate cancer that he had had the treatment, the radiation ended up like annihilating his bladder cell wall, the primary tissue in the bladder cell wall, which can happen over years in some cases, or many years later, I should say. And so he he was in hospital when he passed getting treatment for that, because he kept bleeding in his blood. It was It was horrific. It was just a horrific, horrific death. For him actually very painful. Sorry. I'm
Scott Benner 25:29
so sorry. Yeah, that's okay. And no, no good deed goes unpunished, huh?
Sarah 25:34
Well, there's that. That was sorry, that was a real downer.
Scott Benner 25:38
Well, listen, I'll tell you my, my enduring memories from 911 are kind of twofold. One, my wife worked in Jersey City, right on the water when it was happening. And I'm sure people have stories like this all over the place. But she had a meeting in Manhattan that day. So she was taking the train up from New York. And she just sort of made this last minute decision. Like, I'm not going to this meeting. I'm just going to, I'm going to I'm not getting off at world trade. I'm gonna get off sooner. And I'm in New in New Jersey, and just go to my office and work from there. Or she would have gotten like, right into the city look at like, I'm not just telling you as it's happening. Like, I'm telling you, my wife watched buildings get hit and fall from her office window. Yeah, yeah. So like she would have been in the city. Right. As it was happening, then. It's before? Like, I mean, people had cell phones back then. But But I don't know for for you kids. We didn't used to keep our cell phones on, because it would kill the batteries. Right? Yeah, you would, you would only turn them on to make a phone call. Because I know again, hard to believe all your phone did was make a phone call. Yeah.
Sarah 26:43
Or you could text by like pressing the buttons like a lot. Do you remember that? Yeah.
Scott Benner 26:47
Nobody did that. Yeah, no. Only a mental patient would do that. That was a lot of like, I don't know if that's a pejorative term anymore. But anyway, it probably is. But I don't I can't be perfect. Okay,
Sarah 26:58
you can handle the emails over that or not me. I
Scott Benner 27:01
can't believe you said mental and to calm down, listen to the other story. So not only would we not have our phones on, we wouldn't plug them in constantly, like you all do now. Like so you'd plug your phone in, like once a week. And it wasn't a big part of your life. It was a thing that like sat at the bottom of your purse, or like in the little thing in your car in the middle like you didn't carry it with you. So my wife's phone was all but dead. And the and the system was failing everywhere. The cell system in New York was failing constantly. So I was able to get through to her enough to hear that she had been pushed out of her building by the cops. And they literally just told them to walk away from the water. So they were in Jersey City, and they just said walk that way. And so her building ended up being used as the main morgue, actually, because of its proximity to the towers. They were barging bodies over, and then laying them out in this atrium. So that doctors could help give, you know, make sure people were passed, and then tagging them and doing stuff like that. Actually, a doctor my wife worked with stayed in that building for days doing that. Yeah. But my but my wife, and a friend of hers just walked. And they at one point she turned her phone on and called me. And she's like, I'm okay. We're walking, trying to find her car, like the girl she was with. And I was the father of a baby. So Cole was a baby a baby I call my father in law. I met my father in law along the highway, I moved colts car seat into his truck. He took coal back into Pennsylvania. And I drove north to find Kelly. Oh my god, it took us crazy all day. I think I got her home around seven o'clock that night. And we ended up meeting up like literally on a highway where basically we were like making calls yelling about mile markers and eventually just saw the driver wave out the window. And I came to an abrupt stop found a place to cross the highway and go back again. And then I went and picked her up on the side of the road her friend for doing that for her didn't get home until like two o'clock in the morning. Oh my gosh. Yeah. And you could see the fire burning from my house when I got on the highway in in Central Jersey was insane. Wow, that's my day of memory. My in the aftermath memory is that the train station near my house had abandoned cars in it. Wow. So you could go there in the evenings after everybody was home from work. And you could see all the people who passed away who and their cars had just been left at the train station. Yeah, that's haunting isn't it as it was really terrible. But your father was out there trying to help all the way from Vancouver?
Sarah 29:49
Uh huh. So yeah, so when he retired he was he was really all about you know, doing good and leaving his mark you know on on in the world the best at he Could you just not not in an egotistical way, but in a giving back kind of a way he was he always had a fascination with disasters in international aid work, I guess. But he was kind of creeping on an agent. So he he kind of did what he wanted what he could do locally where he was involved with emergency social social services locally. And he did some training courses in which were kind of offered free for people that wanted to get involved with, you know, your house burns down, let's say, for example, so he would show up as a representative of the local social services network, and he would help you get a hotel, make sure you had your medications and foods and food vouchers and stuff like that, and help you get settled for the night. And that was something that he did in his retirement. And then he really enjoyed that. So he got involved on a bigger scale with Canadian Red Cross. And then he went, and he did a lot of the disaster training work within Canada that he could do. And then when the disaster happened down in the States, they offered him the opportunity to go down and help down there. And he did so. And he also ended up going down to Mobile, Alabama, during Hurricane Katrina. He was asked this, I guess there was some of the same people were involved with the American Red Cross that he had kept in touch with and they said, Hey, you, you, can you come down, you want to come down? Well, we'll get things in motion for if you want to come down. And so he didn't, he went down there too. And interestingly enough, some of the there was a group of I want to say it was this was I'm just going from storytelling. So if the if the details aren't quite 100% Sure, forgive me. But his he was telling. He was telling us that there I think it was a group of Baptists that came from somewhere, I don't know where they would roll up in a giant with a giant, basically food truck. And this was part of their service, their churches service, and they would service the community with food, no questions asked kind of thing. And he found that same group of Baptist in New York, and then he found them again in Mobile, Alabama, when he was down there. They just like, yeah, so it was kind of a kind of a cool thing. Yeah. That's just did.
Scott Benner 32:00
Did he ever expressed any regret as he was passing?
Sarah 32:03
He had a lot. He had quite a bit of trauma. I think not. I think he had trauma. So he had PTSD, for sure. From I think some of the disaster work that he did, and Life wasn't easy to him, either. Growing up he had his, you know, his, his childhood, being told he wasn't smart, wasn't bright, like kinda like you've alluded to on the on the podcast, similar story, but he was like, I never felt stupid. And I just saw things a different way. And you would talk to him now, before he got sick, and he was brilliant. You know, he was just a really bright, really well read man just never went to college and just saw things from a different angle. Yeah, I don't think he had ret, per se. But his key? I don't know. That's a bit of a tough question. I think I got lost my train of thought.
Scott Benner 32:52
I'm just wondering as cancer is taking your life, do you think oh, I probably could have just not gone to that 911 thing?
Sarah 32:59
I don't think so. Okay, he kind of live with no regrets. You know, you you. You pick a path and you rock and roll was kind of the way he did? What kind of? Yeah, sounds crazy. But it was an IT WAS AN AWFUL exit though, because he had delirium. So he was hallucinating quite a bit. And it was really, really aggressive. really aggressive. So he had to be strapped down to the bed and stuff like that,
Scott Benner 33:22
like a good hallucination. Like using a strip club. And he was 25 or something like that. Yeah,
Sarah 33:26
no, no, like when he was in California in the 60s. And
Scott Benner 33:30
those Canadian strip clubs we've heard about on past podcasts. Right. There you go. Yeah. Remember the one Yukon something that girl was opposed to a can can dancer something like that? Yes. Right. Remember, I joked with her, do they? Did they tip you with their chips? And she's like they did? Oh, God. I was just joking. Jesus. It's a real thing. That actually happened. I'm so sorry. Yeah.
Sarah 33:53
My dad was literally in California in Santa Barbara in the 60s, though. So yeah,
Scott Benner 33:56
he was using like, what do you think? Like? Acid? Yeah,
Sarah 34:02
for sure. He actually so he went to Santa. He went he was down doing call it college down there. Taught photography, or he was taking photography. And part of his part time job was he would get paid to. To make sure people didn't kill themselves when they were on acid trips. Oh, yeah.
Scott Benner 34:17
What a lovely part time job. Oh, you're helping people forever. Yeah, yeah. Forever. Yeah. So let's just do an acid trip. And your father would make sure you were okay. Yeah, exactly. like Uber. You have to call for that. How does that happen? I
Sarah 34:30
don't know. I have no, no clue. Was California in the 60s? I don't know
Scott Benner 34:34
your dad. Your dad told you that. Sir. You're like, oh my god, you shouldn't be in charge of me even.
Sarah 34:41
Or you should because you got way more life skill than I'll ever have one of the two. You
Scott Benner 34:45
got all those people through there? Either. They're weird. I mean, imagine how like, unstable those drugs were 50 years ago.
Sarah 34:52
Oh my gosh. Well, you know what? Yes and no, I don't know. Because I think that it was just so pure that nobody was messing around with
Speaker 1 34:59
it. Beto, yeah, no, no, no, no. Who knows?
Sarah 35:03
He lived a wild and crazy life, that's
Scott Benner 35:05
for sure. Your mom's just like, what church lady or something like that, or did they match up?
Sarah 35:09
Not at all? No, not at all. No, no, my mom was really involved with them. She was a physiotherapist. And then she was really involved with writing for the disabled. And she eventually went on to work with the Canadian para equestrian team at Olympic games and things like that. And she was involved also, too. And so you know, when you see all these, like Paralympic athletes, and they're all competing against each other, you're like, well, that person has one arm. But that person has two legs and like, should they be competing against each other? Like, how does that work? There's a classification system in most of the sports that's put into place that will assess the athletes to determine, you know, should they be in class, one a or one B. So she was involved with the writing part of it, and assessing athletes from North America to make sure that they were in the right categories and competing against each other.
Scott Benner 35:58
I hope that everybody who's been listening takes the time to go back over in their head. Oh, I never thought how many people and what kind of effort and space it would take to fold flags. Right? Because try to imagine all the other things that are going on in the world. Yep. And that little thing, took a man who was dedicated and experienced, who had to pull together a team to accomplish that thing that on television, you didn't think twice about? No, no. Yeah. Somebody just reached out with two hands and handed someone to fly in his in a city.
Sarah 36:33
That was that he didn't know. Well, that's not true. He spent a lot of time in New York, but he didn't have community there. I mean,
Scott Benner 36:40
in a city where everybody who, who could ran the hell out of it, because it was crazy. Like living living here even even an hour away. Was it's different. Like my brother lives in Wisconsin, and he said, I have to be honest, he's like, it doesn't feel the same here as it does there. Like like, you know, in the beginning, he was like, it just feels like something happened. I don't know if people remember to that like the week before. 911. Like a paraglider crashed into the Statue of Liberty. And it was it was nothing about terrorism. It was just like some jackass just was out doing something and they hit the goddamn Statue of Liberty. Right? Like, so. When it first happened, my first thought was, oh, my god, is this happening again? Like some jackass is like, you know, like, that was my first thought about it. But anyway, I don't know where everybody was in that moment. I know exactly what I was doing when it happened. Like when I when I when I found out about it. And I don't think I've ever said but I think I was listening to Howard Stern interview. Pamela Anderson. Sounds good. All right. I think that's what was happening. And my son Cole, Cole, and Cole had just finished his breakfast. He was playing on the floor. There
Sarah 37:51
you go. Yeah, yeah. Yeah. Yeah. Yeah.
Scott Benner 37:55
Why did you come on this podcast?
Sarah 37:57
Yeah, I don't know, just to just to kind of chat and share like, some some crazy times of life that happened leading up to the diagnosis, I had dad in and out of cancer treatment and, and then partway through my dad's last cancer treatments, my mom got diagnosed with cancer as well, right in the middle of it. So I two of them had chemotherapy at the same time. And then my marriage was falling apart. And that wasn't good times, either. And then your kid gets diagnosed with type one diabetes. And it's just I think, for me to share that. You know, and you and I talked about it at the beginning, there's the ups and the downs. And not every moment is going to be happy and perfect. But if you can ride the wave of life, things, find some silver linings on there. that's for darn sure. Yeah, some silver linings. You know, there's, I don't know, I just thought I'd come on and have a chat and see where the conversation went more so than anything,
Scott Benner 38:59
you just like the podcast, so you want to be able to? That's cool. That's fine. You're doing a great job doing a great job. God, if you want to say something nice about me, you can I won't stop you.
Sarah 39:06
Do you know what I think you've done is I think you've created a space where people can go in there feeling like they need to reach out reach them to feel their community. So like when you listen to the stories you listen to Eric, you listen to Jenny, listen to you. You feel you're like, Oh, they're my people. There they are. Even if you don't know them, you're never gonna meet all these people. You're like, okay, there's someone who, who gets it, who knows what it's like to have, have it, live it. And you just feel like you're part of a community a little bit more than, you know, going through trying to explain it to people who really don't understand what the hell you're talking about.
Scott Benner 39:34
Is it attractive to you that you're going to be part of that now or did you not consider that?
Sarah 39:38
I didn't really consider it because I I kind of you know, mess around online I mess around. That's the wrong thing. But like participate I should say in that Facebook group a little bit where I feel I can help here and there. So I'll step in and I'll sort of say stuff if I'm like me,
Scott Benner 39:50
says like, I mess around. I do not have an ollie fans. That's I know. Oh, God, no. Don't we all wish our feet were nice enough. You don't I mean, like how we do please make good money, sir. Oh
Sarah 40:03
my goodness, I tell you my truck no one wants my feet. My feet are stasis. That's not good. That's not good. No,
Scott Benner 40:10
I have a scar on my now do you think people would find that attractive?
Sarah 40:14
Well, I don't think so I don't I feel like they're super functional. I'm not sure.
Scott Benner 40:18
I'm just telling you. I work really hard at this. And it might be nice to just like take like action shot of my foot and put it online and make money.
Sarah 40:27
Maybe you should just do it just to see what happens. Maybe there's some juice boxers out there who who'd be interested? I don't know. Hey, you just never know.
Scott Benner 40:33
I don't. I'm not denigrating anybody. If you want pictures of my feet there for sale, just send an email to the podcast. I'd be happy to send them free. We'll work out a price.
Sarah 40:39
Yeah, you don't need to have even another platform. So
Scott Benner 40:42
no, I'm not even gonna I'm not even like No, don't worry about it at all. I'm happy to just yeah, all this work. I'm putting in this podcast. Don't worry about it. I'll just I'll just USD my ankles there. No. You nailed it. There can't be a person on the planet who would find my feet or ankles attractive? No. And by the way, if there are please again, just send an email and we'll work it out. Would you like to send me you might use socks, but I do that, Sarah? Let's think about it. Yeah, you would send her enough money. Probably. Thank you. Imagine if this podcast falls apart, Sara because I am such a bustling stinky sock business going that I can't keep up with the podcast though.
Sarah 41:20
You know what if that's what makes you happy? That's awesome.
Unknown Speaker 41:24
I don't think it would make you happy.
Sarah 41:25
I think it makes you feel a little creeped out.
Scott Benner 41:27
I would why would you stick them in the envelope, yelling at myself and then stick them into the mailbox? Probably.
Sarah 41:33
But don't send them before you get paid? Because that's
Scott Benner 41:36
a look at you with good business advice. Thank you so much. I appreciate deposit
Sarah 41:39
maybe a deposit just to get the shipping together pay ahead
Scott Benner 41:42
of time. That's fine, because I can always make more stinky socks if they don't arise, don't you? Absolutely.
Sarah 41:47
Absolutely.
Scott Benner 41:48
What's the weirdest smell you've ever gotten from your socks?
Sarah 41:51
Oh, just you know the sweaty?
Scott Benner 41:52
You know the sweaty socks didn't remind you of something though.
Sarah 41:55
Probably a hotkey change room.
Scott Benner 41:57
I once thought my socks smelled like sour cream and onion. Potato chips.
Sarah 42:01
Did you eat sour cream and onion? Potato chips? No,
Scott Benner 42:03
I don't even like sour cream and onion. Potato chips. I know. I found that upsetting to it was years ago, but they definitely smelled like that. And then I tried to make Kelly smile. She wouldn't do that. No, no, she would not.
Sarah 42:17
That's good. There's only a certain amount of time that that you can expect someone to do that for I think marriage. Yeah,
Scott Benner 42:25
I think that's maybe something you get away with in the first eight months of dating. Yeah, but certainly not after 20 some years. Nobody's doing
Sarah 42:32
she she just tells you to pounce. And I'm sure
Scott Benner 42:34
she'd like you could leave or get away from me with a sock. So I was like, Okay,
Sarah 42:38
I need to move along. Well, yeah. Yeah. But we can we can. We can talk about your lovely sponsors if you want to, because I think they should get some props right now.
Scott Benner 42:47
Go ahead.
Sarah 42:48
I'm an ag one convert. Oh, I've
Scott Benner 42:50
started because you drink ag one.com/juicebox? You bet.
Sarah 42:54
I've been on it. I've been having it for about a year, almost a year, when did you start advertising with them? Or would they started with you?
Scott Benner 43:00
It's gotta be, I gotta be the end of my second. Am I at the end of my first year? My second year was I was using it before that, right. And then I don't know if this is a year. So I don't know if I've been using it for two years. And they've been with me for a year if I've been doing it for two years, but they did sign back up for next year.
Sarah 43:17
Fantastic. Yeah. It's a great product. It's it's yeah, it's a great product. And you know, like I'm an elementary school teacher and I don't get sick. No. And I feel like I put it through the real
Scott Benner 43:28
test is kids are Canadian too. So they're extra dirty. Yeah. Yeah. Because they gotta
Sarah 43:32
live outside. Yep, that's true. That's true.
Scott Benner 43:35
Do they have shoes? Or shoes? The kids have shoes,
Sarah 43:37
right? Yes. No moccasins. Um, you know what? In Vancouver here, we're pretty similar to the climate of sight of Seattle. But we got beautiful mountains. It's gorgeous.
Scott Benner 43:48
I mean, I'd come by so far away. I know.
Sarah 43:51
Hey, you guys have a direct flight New Jersey to Vancouver?
Scott Benner 43:54
Oh, that sounds like six hours.
Sarah 43:57
Probably 555 ish.
Scott Benner 43:59
If I stayed long enough, I wouldn't mind. But like, sometimes people are like, You should come out to Montana and give a talk. And I'm like, I'll be there for two hours. And I gotta fly to Montana and then fly back again. And like I can I stay for a week? Like then I would do it in any means. But
Sarah 44:12
yeah. Roll it into a family vacation. If you if you were to get asked or decided to come out here. It's pretty spectacular. Yeah, it's pretty spectacular spot from all over the world to come here.
Scott Benner 44:22
I just want you to try to imagine if I went to Vancouver before Toronto, if Isabelle in the Facebook group wouldn't just murder me.
Sarah 44:30
That's true. Yeah, that's true. But see, the thing is, is that Isabelle lives in the like the New York equivalent of Vancouver, right? In New York. Yeah. The New York event equivalent of Canada, I should say sorry. I misspoke. Like Toronto. Everybody feels like it's like the best place in the world. Right in Canada. They're wrong. It's Vancouver.
Scott Benner 44:49
Here, here's what I know about Vancouver. Bad television. Pawel boy. That's what I
Sarah 44:53
have. Pebble bruh. Yes.
Scott Benner 44:55
Yeah, that's all about Vancouver. Hey, we
Sarah 44:57
hosted an Olympic Games in 2010. You Yeah, I saw
Scott Benner 45:00
on television. I could have been anywhere. I don't know you could have been lying to me. It's true. Yeah, sure. We were we were it's all a conspiracy. I'm still not sure about the moon landing. Yeah, no, you don't let me just go out and say this real quickly. I am very sure about the moon landing. No, I don't want to.
Sarah 45:13
I think it happened. 100% to happen. Yeah.
Scott Benner 45:17
Sorry. I believe that the moon landing happened. Trying to be stupid. Yeah. How many listeners did I just lose? Were like, Oh, this guy thinks the moon landing happened. Done. Click.
Sarah 45:29
That's it. I'm out. Yeah, no, it didn't happen. Yeah, like no, with the
Scott Benner 45:32
globe is round and the moon landing happened. There's no Sasquatch. And that's pretty much where I'm gonna stop. Yeah, I could be wrong. I mean, I don't think I'm wrong about the globe being round, or somewhat round, at least globey.
Sarah 45:47
It's round. You see it from the from spaces round. It has to be round. I
Scott Benner 45:51
swear to God, a sports figure that I really enjoy watching play. I clicked on something the other day. And I heard him say, Listen, if you watch a rocket go up in the angle it goes on. I was like, Oh my God, he's a flat earther. And I was like, I'm like, I shut it off. I'm like, I want to be able to watch the sporting event without thinking about that. Like, so I didn't even let him finish. I pretended that's not what he was gonna say. I was like, okay,
Sarah 46:14
so I think that was a good choice. You don't want to tarnish his? You don't want your image of him tarnished. I just don't need that.
Scott Benner 46:20
Just want to cheer for him. That's all I don't want. I don't want to please. She's How does your daughter handle diabetes? Like I'm obviously now she's not using regular and mph anymore. So what's the management? Like? How much of it is you? How much of it is her? How much of it is a mixture? Does her dad get involved? That kind of stuff.
Sarah 46:42
Okay, so where are we we are looping on Omni pod Dash. And we finally got the g7 up here. So that's really nice. And so she's been on she's on her third g7 sensor as well, which is great. And we've been looping for two years in February coming up. So it's where are we? No. No December now. So it will be two years in a couple months. And that has been a complete game changer. Thank God for loop and the people involved with loop. Yeah, thank you. Thank you. And so we started doing that, and then getting the settings dialed in was a real pain in the ass. I'll tell you that much. As you know, it took me a long time. And I found because she didn't really have a cycle. And she didn't really have it was just hard. And she's really active at some points at school and some parts during the day. And then after school and then other days. She's like flopped out on on the weekends. And so getting the settings dialed in has been really was really difficult for me, because she is like zero interested in testing her settings. Like there's 00 participation medals there. So it took a lot of fiddling for me on the back end. And she's doing pretty well. We got about 80 85% in range, I would say. So that's between 40 and 180. I think it is okay, I'm 70. So, we her last day when she was six,
Scott Benner 48:00
what did you hear about loop.
Sarah 48:03
So actually, I ran into somebody I met through JDRF, who I was on, I sat on the walk committee, the local walk committee, and she and I were chatting and she's just she was super smart and seems super with it and chatted with her. And she was like, You got to try a loop. And I was like What's loop so she sent me all the docs and all this stuff. And I got on the Facebook page and lurked around in the background for a while nice. And then we were that were on dash at that point. She was just I was just in hindsight now you know, with loop you just learned so much more about how how to really work with insulin and how to really you can just see it in real time, right, what's happening. So I think if I was we go back to dash if ever we had to for whatever reason, it makes like I would be able to handle it. And teacher and educator a lot more efficiently. You know, we get stuff dialed in pretty fast. But you know, the reason what, what kind of pushed me over the edge to get into looping itself was she she got migraines, and I didn't actually realize they were migraines, because, you know, I don't really get anything like I'm pretty, pretty healthy. And she was getting these like weird things where all of a sudden, she would just like, have to fall asleep. She'd call me from school and I'd have to go get her and she wouldn't make it home the four minute drive it would take us to get there. She fell asleep in the car. I was like what the hell is going on with you now she would just pass out? Well, she ended up having a severe low blood sugar. And I couldn't get her to wake up from it wasn't because the blood sugar was that low. She was just passed out from this one I now know is a migraine. And she wouldn't take juice. And I was like, Oh my God, and I had to use glucagon on her. Yeah. And I was like, Okay, well, I'm practically killing her this way. So let's try a loop and maybe we'll try and kill her the other way. And loop was magic. You know, once I got it set up and dialed in and sorted out. I mean, just the nights alone was like, oh my god, I'm sleeping again. This is heaven. Yeah. So
Scott Benner 49:51
I almost don't care what algorithm it is. Like, if you can do it, like find a way to it because oh my god, it's just I mean, art is using Iaps right now. Yes. And so I could not have ever said luck without Mike's help. Mike's a guy who has been on the podcast, and he helps me. With stuff like that, I would have never known how to get it set up. I didn't have that deep of a knowledge of it. But man, it works really well. Like it's just fantastic. And loop was also fantastic. So
Sarah 50:20
I've been lurking in the background of IEPs for a while now just reading and watching and watching and reading. And I'm like, that's, I think where I want to try next.
Scott Benner 50:29
There's a lot of initial settings that I don't have the first idea of what they do. And I haven't even dug into it yet. It's just working so well. It kind of doesn't seem to matter. Right? That's great. This is I don't know if I've said this on the podcast yet. Probably not because it only happened the other day. But we are experimenting with a GLP for art into. Oh, interesting. Yeah. So she probably has PCOS? Yeah, oh, shoot, I'm sorry. I'm gonna guess like, you know, she's got symptoms. And, you know, acne bothers her tough periods. Like that kind of stuff. Right. And so, her endocrinologist who is, you know, some people might know, for the podcast, but she's like, I think we should try this. And she tried to put it through an insurance would not cover it. So she gave us a, what's the word, I'm looking for a sample. And it's a very low dose, like quarter of a milligram enter the mean, and tiniest little bit. The doctor's like, I don't think we'll ever get past a half a milligram on this. But she's like, you know, we'll find a way to get it for you, we're only going to use like a pen every two months. You know, there's ways to get it outside of insurance. It shouldn't be too cost prohibitive. And we'll know in a couple of months if this is actually valuable for or not, it's not like it's going to be something like huge cash outlay. And then like a year from now, like, oh my god, what a waste of time. You know, like, so. I was like, Yeah, let's definitely try it. This is the same doctor who a year ago was starting to say to me, like maybe we should put her on Metformin. But then she started seeing so much good, like feedback from the GLP peas. And so like so here's a an example. That's not scientific at all. But I use, we go V for weight loss. I just buttoned up a weego V diary this morning. I could not believe it. I cried. While I was like making my diary entry that's never came anywhere. I was like, crying because it significantly changed my life. I've you people are going to hear me say over and over again. I just don't think my body ever worked. Right? I don't know why. Now it seems to work well haven't drastically changed what I was eating wasn't eating poorly before, like this whole thing. Right. And so my wife using it as well. And she had, you know, of course, got hypothyroid ism, and had it for seven years on treated, which led to an awakening that she's now working off with this, we go V fantastic. Anyway, she's in a Facebook group. And my wife is like, they actually call them like ozempic babies. And I was like, what do they call us on pick babies, she said, So many women who like their whole lives could not get pregnant, who are now on ozempic or Manjaro, or something like that us and we go for weight loss one of those GRPs. And they respond like it feels like almost spontaneously getting pregnant. And I was like, huh, and she goes, they're saying it's got something to do with hormones. And like these, a lot of these people had PCOS symptoms, like this whole thing, like kind of like piecing it together. So you look online. And you know, there's some studies going on about that are very positive. I mentioned that a doctor doctor is like, I just got back from a conference about this. I'm hearing the same thing. Let's give this to Arden and see if we can help her with her. Like, you know, like stomach pains around her period and stuff like that, like maybe this will really help her. So that's what we're doing. But I'm also have people coming on who are type one who are using it. And their insulin use is significantly lower. Like interesting. creepily lower. In some cases. Like some people, it's a 20% decrease. But I have a little girl coming on with her mom, like she's 14. She's down to just Basal insulin. Like
Sarah 54:15
she took she took her pump off. How long has she been type one
Scott Benner 54:19
for I think a couple of years. But she's obviously still in some sort of like a long, like protracted honeymoon. Right? Right. Cuz I mean, you're not getting away with not injecting for food. Like if you've got listen, if you've got full blown type one and you're not like ejecting for food, something else is going on. So you know, but she's you know, maybe it's gonna get a break from it for a little while, like you know, so I believe based on nothing but my own experience that she LPS we are just scratching the surface on the different things they're
Sarah 54:51
going to do for people. Yeah, yeah. Because that's really interesting that it's that it'll be interesting to see what it does for Arden, my kiddo seems to have some of the similarities that Arden had with her periods and whatnot. And I've tried the inositol. And I've tried, she doesn't get the stomach like pain stuff that Arden does, but she gets a lot of the other. The other things. It'd be interesting to see how Arden does with it. Yeah,
Scott Benner 55:18
did the analysis while not help her with like, bleeding in length of periods?
Sarah 55:23
Yeah, it does. But she's 15 Right now, and she doesn't always take it. And I can only fight so many battles.
Scott Benner 55:32
Fascinating. Like, just drink this. You're gonna drink something today. Just drink this. What are you doing? Just drink this stuff?
Sarah 55:36
Let me drink is fine. Just put it in your water. You said you don't even taste it? Yeah, I know. But I just I can't What if my friends drink my water? I was like, they won't die. their ovaries
Scott Benner 55:44
will be fine. So that everybody what if my friends drink the water? Oh my god. What? Is she a hippie? Who cares?
Sarah 55:52
That's what I've said over the years. I'm gonna just take it. Just take it
Scott Benner 55:56
grandpa used to help people through their highs. They were fine.
Sarah 55:59
Totally fine. Just this is consider this your gift back?
Scott Benner 56:03
No. So it helped her but you still can't get her to do it all the time. Yeah, I
Sarah 56:07
can't get it to do it on time. She has to take a bunch of vitamins for migraines, actually. So it was like a lot, which is actually really helped, which I did want to bring up she she takes a bunch of cuz she was getting these migraines. Like every two weeks, I was like, oh my god, this is terrible. Like you're a mess. So I actually was doing some research online and the local children's hospital had a migraine kind of vitamin supplement repertoire, I guess, if you will. And it has been a game changer for her. And it's nothing expensive. It's like magnesium. There's magical magnesium. Again, it's like Coenzyme Q 10. And some b, b to riboflavin. Or whatever it is. Okay, and just an took about a month for it to kick in. And she maybe gets one. She doesn't have one only eight months.
Scott Benner 56:56
That's terrific. And that great. Yeah, I so badly want to add more supplement supplements to the show like conversations, but finding the right person to talk to about them. It's very difficult. Because it's you so easily could slip down like bro science like charlatan, like, and you don't want to do that. So yeah, I'm giving my whole family like a, like a methylated vitamin right now to see if that helps them with some things like I don't know if it will, I told them like, like, let's do it for a couple of months and see what's up. But to your point, like to two weeks into an art on my garden to vitamins, they're still sitting issues. I take this and I'm like, yeah, like Okay, so like I used to just swallow it. Just just swallow, please. But you know, but she says like her stomach can hurt if she takes them. So we're kind of hoping that maybe calming everything down in her lady bits might make all that stuff a little better. Not not our bits bits, but the bits inside. You know what I mean? Yeah,
Sarah 57:51
yeah, no, it's too technical. Yeah, no, no, the ovaries Yeah,
Scott Benner 57:55
it's basically like, I'm an OB, is what I'm saying. Yeah. You
Sarah 57:58
know, and I was like, I was looking for somebody to kind of help me because I kind of felt like, my daughter's like, overall, like other parts of our health, were starting to like to fall apart a little bit like, she has some different weight gain in certain random spots. And she does have the thyroid antibodies already kind of creeping around. We know that that's going to be that's a watch point. But they kind of they're not even close to two yet. I was looking at them the other day, and they're like, 1.4 there, you know, 1.6. Yeah, yeah, they're kind of there. But I'm thinking, Is there anything that we can do to kind of help? And I thought, oh, maybe there's a functional endocrinologist or somebody like that. Like, like, who Arden sees. And I started looking around, no one will see kids. I can't find anyone to see kids.
Scott Benner 58:44
I had to talk them into that. Yeah, I had to say, Daddy, oh my gosh, she's 16. Don't worry. She'll be 18 Two years. Just see her now. Yeah, just,
Sarah 58:51
they're not interested. They won't even return my phone calls and they want you and it's like they're like, nope. And I said, Well, do you know anybody that does see them? And they're like, No, as soon as you they find out she's a true, you know, even a naturopath, true autoimmune patient that takes injectable insulin, all of a sudden they disappear. They don't want to have anything to do with you. Interesting. I found that a little bit interesting in itself. It's like, just too complicated. I'm out.
Scott Benner 59:15
I've had to be a little persistent a couple of times in my life. And yeah, it's it's a lot of work getting somebody to see see you sometimes. Yeah, yeah, it's such Well, listen, just tell her I said to take the an acid tall and stop it ridiculous. Yeah, I don't know. Like, tell her like my kids over here doing the same thing like garden drink that you've had that water all day. You've drank other things. You say you can't taste it. I've had the same conversations. Trust me. It's just put a scoop of it and you drink just and it's over.
Sarah 59:45
That's all you have to do. Just do it. Stop being so dramatic.
Scott Benner 59:48
But it's interesting. Yeah, I'm not dramatic. Yeah, no, no sure. This isn't drama at all. I've asked you about vitamin 16 times today. It's a lot of fun. And then she's like, when you say it, I don't want to do it. I'm like when I don't say If you don't do it either. It's like you're setting up a no win situation for me here.
Sarah 20:00:08
It is. I know. Okay, great. You've known all day. Can you just do it now? You keep knowing so many things in your 15 year old life. Can you just do it? Could
Scott Benner 20:00:17
you do one of them, boys? Just one of them? Yeah,
Sarah 20:00:20
I know. Yeah. I got it.
Scott Benner 20:00:21
I hear you. Oh my gosh. It's funny. I listen, I try them all with them. By the way. I'm like a call taker. I don't even have that problem. And I'll take them with you. I put them right my mouth and like say, Done, gone by giving them my son. My son's like, bang here. I'll try it. He's like, I'll let you know what I find out. I'm like, Thank you. Thanks, Denise.
Sarah 20:00:36
Thank you, son. Thank you. Yeah. Well, you're
Scott Benner 20:00:39
gonna say someone cut you off. I said, I take them too. And you went Oh, like you had a thought?
Sarah 20:00:43
Oh, yeah. No, I've been taking the inositol to sorry. Yeah, no, I've been taking it as well. And to you know, I'm in the pre menopausal stage of life and need as much support as I can get, so why not give it a shot? It's not gonna hurt me. So I tried it and that's fine. didn't taste like anything
Scott Benner 20:01:00
valuable. Do you notice a difference for anything?
Sarah 20:01:02
You know what? So I'm not pre diabetic at all. And I'm, and I did notice a shift in my agency. Down a point out there a quarter. So not a point. Attentive a point. Okay. Yeah. So I think it's like 5.1 or 5.2. Okay, so it came down. Yeah. So I don't know if it has to do with anything. But you know, what else? What else?
Scott Benner 20:01:24
I've seen people start using it and have different insulin needs. I've seen the other plenty of stories online about people getting pregnant when they couldn't get pregnant using it. Arden's endocrinologist told me the other day, she was just at a conference, and things that help women with, you know, PCOS and those kinds of problems. Do they kind of move things onto a list so that these doctors, these doctors kind of control what other doctors hear if that makes sense. Yeah. And she's like GLP is are firmly moved on to the list now. And so they finally moved. She said, an Astra tal on the list finally. And so now you guys will magically start hearing from your OB he's like, over the next couple of years. Like have you tried this? Have you tried mixing this in water? Like Like, that's gonna start coming up now? You know, slowly is it been circulates out to people. But my doctor Arden still ended
Sarah 20:02:16
up getting it 10 years down up here in Canada. It's shocking how long it takes for stuff to come up here.
Scott Benner 20:02:21
Yeah, you're you're on snowmobiles, so it's Yeah, everything. Thanks. Sorry. Did you get the list of a little girl from Canada was like, oh, there's cars in Canada. And she's you
Sarah 20:02:29
did so well with her. She was so cute. But oh my god, you really it was awesome. You're really good with kids. It was really funny.
Scott Benner 20:02:37
She sent me an email afterwards. I haven't responded to it yet. I don't respond to any of your emails, like in a timely fashion. Not on purpose. So I feel so bad that I like got an email from a nine year old. I was like, I'll get to that in a couple of months. But she was like, my mom didn't trick you into being on the show. You just misunderstood the email. I was like, Oh, okay. Well find that. Oh, and speaking of kids, in such you're such a fan. Next week. I'm recording with Sophia. She's the From Russia with sarcasm girl.
Sarah 20:03:04
I don't know her yet.
Scott Benner 20:03:06
Oh my God. You're gonna love that episode from Russia with sarcasm. Oh, fantastic. Yeah, she came on as a little kid. And she's now like, much older and coming on the show. So good. Yeah. Oh, wait a minute. Do you know I actually have an episode called From Russia with insulin and an episode called From Russia with sarcasm?
Sarah 20:03:27
No, I must. Those must be earlier ones. Because I haven't heard Oh,
Scott Benner 20:03:32
yeah, Sofia's with 2021. The other one was like 2020. Anyway, don't,
Sarah 20:03:37
I might have just missed them. I kind of jumped all around at the beginning, that's for sure. Hey,
Scott Benner 20:03:41
listen from Russia, with sarcasm is one of the best episodes of the podcast. So I will tease it out the tiniest bit. Little girl in Russia diagnosed, not happy with her own health. Parents not able to help her system not able to help her, finds the podcast, figures out all the stuff she needs to be healthier forces her parents to buy it for her, pulls her own health together. I had a girl really, really something right. And now lives in America and contacted me and she's like, Hey, it's Sophia. Like you want to I'm like, Oh my God, I've been waiting to hear from you. I was like, you come back. Because she and I had like the same sense of humor. Except I was of course, you know, 50 years old and she was a child.
Sarah 20:04:26
And her English was good too. Then she's
Scott Benner 20:04:27
terrific. Yeah, yeah, it hurt her English just fantastic. I know it's such a story about I mean, honestly, I think everybody's stories end up being like this right but like she did not give up. She didn't give in and she just like fought for herself even as a child. Yeah, really cool. I'm hoping that her story goes I hope she's not going to get on and be like I use heroin now pretty regularly.
Sarah 20:04:48
So I got this so much better. My blood sugar's are way more manageable.
Scott Benner 20:04:52
I just hoping she's still together. Like I just don't want her to get on and be like, Oh my god. So after six years of homelessness, what I decided to do was Like get I want her story to keep getting better. So hopefully it will we'll find out when I talked to her. You
Sarah 20:05:05
know what personalities like that generally when they take control at such a young age and go for it most of the time that plays
Scott Benner 20:05:11
out? Yeah, yeah. Should be good. That's really great. I just had so many wonderful conversations with people who were just very impressive. Yeah. And yeah, and I feel like everybody could be. Oh, yeah, with the right, like, listen, we'll finish up with a sir. Right? You bet. Sarah and I were talking about this before the podcast started, I think I think I have a way here to talk about it like enough that you'll understand without it being too in the weeds and boring. But most people in the world, listen to podcasts on an Apple podcast app, like on an Apple device with the native Apple podcast app, they very recently changed how the app works. So you're not being served all the episodes the way you used to be. So it's going to be more on you to dig through the app and find the x episodes, which is just sort of not how people work, they tend to listen to what they've been delivered, right. And if you don't believe that, remember, the last time you turn on Netflix, and the you looked up, and you were six episodes into something, it's just how people were. So that helps me with my downloads helps me with my downloads, which helps keep the show popular, which helps me keep interviewing people helps me run the Facebook group, like all that stuff keeps all this alive for people. Anyway, they made a change, and it's impacted the downloads and how people are seeing the page. And it's making me like crazy, like, like, I don't mean that like, in a funny way. I mean, like it's ruining my life. Well, I spent the better part of six to seven years building the podcast up to what it was, and the last two years into making it like a juggernaut. And it and it really is now. And this is going to significantly impact that. It's not going to impact how many people hear the podcast today, it's going to impact downloads, and only by a couple, like Believe it or not, we're talking about like two downloads a person, not even a person two downloads a device a day decrease, but that's going to significantly hit me, that's going to create a situation where the advertisers might panic and think, Oh, my God, like you know, what's happening. And there will be like a, if that happens, the whole thing will just crumble and fall apart. And so I've spent the last number of weeks, just ruminating going over how everything works, seeing what the new landscape looks like trying to figure out how do I like, you know, build back again, like what I'm going to lose, like all this stuff. And I just keep getting hit over and over again with I finally found a way to help people. And it's successful. And now someone's going to try to take it from me and take it from all of you. You don't think of it that way. You're probably thinking like, oh, like, I just want to lose this podcast, which I don't. And I don't think I'm going to that's not the point. The point is, is that for every episode you don't get it's another opportunity where you could have listened and you won't. And then it could end up taking you longer to get to success. Or you might give up because I just stopped giving me those episodes, I guess it doesn't exist anymore. And a lot of people you'd be surprised will just be like, Oh, okay, that's over now. And they'll move on. That's another person who won't one day become healthy and successful. And go on to tell another person about how the podcast helped them. Yeah. And so it could be it could be a thing, where five years from now, the whole thing's over because of a decision that was made by Apple in 2023 in September, and that is not hyperbolic. Like that actually could happen exactly like that. If you don't believe it think back two years ago to your favorite YouTuber, who then all of a sudden said something that the establishment didn't like, and now you don't know where they are anymore. Like so this isn't just happening to me. It's happening to all large podcasts. Yeah, you know, anyway, yeah. Last night, at some point, I was pretty sure I was going to fling myself off the roof of my house. Like that's where I was with all this. I was like, I'm just going to climb up on the roof and die from spinal cord injury. Now, I can't just tell you this anymore, like I fought through. You've no idea i in a million years could not explain to us or anyone listening, how hard it was to take a niche idea like type one diabetes and turn it into an internationally popular podcast. It was getting hard, okay. And it took a lot of will and determination. And I don't come on here and talk about it that way usually, because I'm just trying to put information out in the world conversations that are going to help you all but it's way harder than you think it is. And
Sarah 20:09:39
I can imagine, I've seen people tried to build their little businesses online just like through Instagram and YouTube and Instagram and Facebook and it I see what they go through. It's not for the faint of heart at all
Scott Benner 20:09:51
I am aware of this is probably something I've never said on the podcast. I am aware of 85 other type one diabetes podcasts. that since mine existed, tried to exist and failed. It's not easy. Okay, and I don't want to I don't think there was like in the last 10 years, you know, 1000 type one diabetes podcast, and 85 of them failed. And you know, 900 of them are doing great. That's not the case. No, they're 85 of them fell on their face. Nobody listens to them. For whatever reason, it's not even a judgment of them. It just didn't work out. Mine is insanely big. And there are 12345 others that are mostly hobby level, or, honestly, just how do I say this? They're just people with coaching? Yeah, there are people with coaching businesses who are trying to pretend to make a podcast to get you to pay for their coaching. So that's basically what's going on. Okay. Yeah, and I'm sure there's a couple of nice ones out there that I'm not aware of, like, I have no idea. But mine is the only one that charts and is huge, and like everything. And I just felt like oh, my god, like, something I didn't do is going to ruin or potentially has the potential to ruin this. How do I combat that? Yeah. And I'm like, I'm spinning in circles, trying to figure it out. And then I just realized, I'm telling you this morning, it just hit me. I was like, I'm gonna write a letter to Apple. And I'm going to tell them what they're doing to people with type one diabetes, whether they know it or not, I said it in a very nice way, I laid it all out so they can understand it. I'm sure no one will ever read it. That made me feel better. And then I said to myself, I grew this thing wants by telling good stories, and sharing good content. And I could do it again. Oh, yeah. So and I don't want you to think that the podcast just fell apart. And four people are listening. It's not like that. It's so no back catalogue downloads that bolster my overall number. And that number is comforting to advertisers. Yeah. So even though I'm not going to reach fewer people, and even though I don't think the impact for the advertisers will actually decline at all. It's that big overall number that could scare some people who don't understand the space well into running away. If they run away, then your good friend Scott is now the most popular cashier at Walmart. He's not making a podcast anymore. And then just all but
Sarah 20:12:19
you know what I was thinking, Scott, like, when you because you have the Facebook, such a robust Facebook group all say, Holy smokes, that's great. You have that. So most people who are listening are like, Oh, Scott's podcast went away. They're also probably I'm guessing members of the Facebook group. So there'll be like, hey, no more podcasts. Oh, no, you got to do and then someone will jump on? Probably Isabel, because she's amazing. And say like, oh, no, you gotta go and do this, this and this. Yeah. work
Scott Benner 20:12:49
the way you think. Really? Hey, so yeah, so here's how I thank you for that. Hey, I really appreciated that. I didn't do a lot of Canadian things today, but that one was great. Yeah, here's what here's what it is. The podcast. I haven't apologized yet. I know. That was good. Canadian. I have to apologize. Oh, my God. Oh, I'm so sorry. So sorry for what? I'm really trying not to Oh, I got the last thing. But and so
Sarah 20:13:16
nobody apologizes for that.
Scott Benner 20:13:19
Mapping this donut. Oh. But so the podcast, you got to kind of think of the podcast that Facebook group as separate entities. Oh, interesting. So when it first started, I thought, Oh, my God, this is going to be amazing. Because everybody's gonna find the Facebook group and run and join the podcast. And you know, there's going to be and you might think that's what happened. And to some degree, it does. There are plenty of people who overlap are in the Facebook group, who also listen to the podcast. But most people who listen to the podcast are not in the Facebook group. And for some reason, the people in the Facebook group do not in numbers big enough to make make me happy. Yeah, go listen to the podcast. So I think they're two different people. And to me, like some people, like I don't want to hear it. I don't know how to impress upon the people in the Facebook group, like, look, I don't even care if you listen to it, just subscribe for God's sakes, like you'll make the algorithm think that we're more popular than we are. And then they'll find out the algorithm will find other podcast people who, like need diabetes, and that will serve it like these algorithms run everything well. And
Sarah 20:14:20
to be honest with you, this new the new changes to the Apple podcasts kind of ticked me off because I don't want to listen to the other podcast. I've always listened to, you know, to the juice box first, and then I have other ones and other genres that I listened to, but all of a sudden the other diabetes podcasts are coming up like these people. It doesn't work for me there. It just doesn't work for me. I don't want to hear them and they see they still keep showing up. Which is really annoying. It's
Scott Benner 20:14:45
showing you I'm not like an ad but it is like you might also enjoy this and so instead of giving you the podcast, you've told it you want it saying well what about this one? Yep, yeah, no. So yeah, Apple's goals and my goals aren't the same. My goals are to find people to type on Babies and help them and support them and create a community for them. And their goals are, you know, Hey, Scott, we want other podcasts to be popular too. And by the way, on a business level, there are a lot of unscrupulous people who let me see the best way to explain this. If you had 100 listeners to your podcast and put up an episode a month, you would probably get about 100 downloads a month. If you put up an episode a week, you'd probably get about 400 downloads a week. So people start seeing that and going, Okay, what else could I do? And then they'll make these like five or 10 minute like, little short, meaningless, nothing episodes, because now they're like, Well, if I put two up a week, then I'll get, I'll get 200 a week, that'll be 800 a month, like like, you know, they start doing that math. And so a lot of podcasts will put up, basically filler, like short filler stuff. They're not trying to help you. They're just trying to get your app to download the thing. So they can go back to an advertiser and say, Oh, my God, I know, you think I only get 100 downloads, but I don't really get 1000. And, you know, like, Can I Can you give me $20? Please, for those 1000 downloads. That's what they're trying to do. Right? And so,
Sarah 20:16:11
I'm amazed the sponsors don't kind of aren't wise to that sort of stuff, though. Well, they must be they
Scott Benner 20:16:16
are to some degree, but they also it's such an emerging thing that a lot of them are just like, 1000. Cool. Here's the $20. Because that's, by the way, how it works. I think it's 20 or $25 per 1000 downloads is what you can charge somebody for an ad. And it's not like it's not like, it's not much No, it's not it would be more than that. Yeah, it's terrible. So like, and by the way, it's not like, it's not like, Hey, Scott, your podcast got 5 million downloads last year. So wow, you must have made what's 1000 divided? What's 5 million times? And by the way, I will tell you that math, 5 million divided by 1000. Is 5000. Opportunities to make $20. Okay, yeah, and so. And so that's, you know, that's 100 grand, and then taxes, right? And then you know, blah, blah, blah, and then you know, before you know it, you've made like $12. Also, that's not how I build it out. It doesn't work that way, you would think it works that way. But those are a lot of back catalogue downloads, which you don't get paid for. You get paid for how many downloads you can get in 724 hours, seven days, 30 days, 45 days. That's it. Okay, so I don't want to give my money away here. But I can basically tell you that advertisers would be thrilled if a new episode got at least 10,000 downloads in the first 45 days. Rarely, it's not five. But how thrilled
Sarah 20:17:44
like, are they just like verbally thrilled? Are they like going to pay you in money thrilled? It
Scott Benner 20:17:49
covers their cost? Okay. Yeah. So like, they're happy with it, it did what they expected it to do. And I'm talking about like, not just like a device company, but like athletic greens, or anybody, like that's what they're looking for, right? So it's please don't think that I'm making $20 for every 1000 into 5 million downloads. That's not how it works. So I'm not like saying, Hey, Apple, you just cost me like all this money. That's not even the case. What they're costing is your engagement with the podcast, which then cost the possibility of you figuring out how to manage your diabetes and be happier, which then costs me word of mouth. Sure. That's what it does. So I'm not wealthy, I make a living and way more complicated than I ever thought it was. Yeah, it's insane. And so then just changing that app a little bit. You think, Well, it's just one app doesn't matter. Like most of the world uses the apple podcast app, like you think, Oh, what about Spotify? I'm not Joe Rogan. Like that's it like Spotify, props up their own shows. They're not helping me. So like, I have Spotify downloads. I'm sure most people who make a podcast if they saw my numbers would be like, what enough? Are you complaining about buddy? Like, like, like, right, but but I'm not complaining about the numbers. I'm not I'm complaining about the life and longevity of getting the information out into the world. Yeah, and I think this is going to, this has the real opportunity to mess that up. So anyway, it's such a shame. Yeah, now I have to go find 1000s 1000s of more listeners, which is not an easy thing to do, to combat what the app change did, to the numbers and to the people, because now now just getting one person to listen doesn't have the same impact on the show and to other people as it used to, I might now need to get 10 people to listen to get the same word of mouth impact as one person would have in the past. And I know that might sound convoluted, but trust me, it's clear Isabel in my mind, all right, you know, so anyway, that's where we are. And yeah, you know, that's what I get up and do every day. And then all I really need the truth of the matter is, is that if a percentage of the People in the Facebook group would just pick up their app and say okay or subscribe or follow the show and make sure that my my settings are set up so that I get new episodes. If they just did that. Then we would be Joe Rogan in the in the diabetes space. But you can't get people to do it. And by you, I mean me, because I've been trying for three years. Yeah, yeah, yeah. So yeah, I cannot get people to leave. Oh, my God, sir. You no idea. It's all horrible. It's not as bad as the making the podcast part and helping people part. That's fantastic. Everything else that goes with it. I don't leave this goddamn room. Yeah, I'm going to tell you right now. I, I was on the verge of tears last night. I was standing in my bedroom getting ready to go to bed. My poor wife is in bed, having worked all day. And I was like, I've been trapped in that kitchen room for nine years to build this thing up and somebody makes an adjustment to a king app. That's it. That's how this all goes to hell. Like I said, I was like, I'm finally got this thing to like a really successful place. And it's not lost on me. If you've ever a kind soul, you might be thinking, Scott, if you help one person you helped. And I do really feel that way. But you don't know what it's like to reach one then 10, then 100, then 1000, then 10,000. Oh,
Sarah 20:21:19
yeah, I I can only imagine I think it would be as one of the reasons why I appreciate the podcast so much is is the truth reach that it's had and that you hear it time and time again and people stories as they come to you and they you know, online or, you know, in the stories that they share on the podcast they're genuinely see. And there's a lot of pressure that comes with that for you a lot.
Scott Benner 20:21:41
Oh, it's it's constant. Like, yeah, I have advertisers who are always looking at me going, how many downloads? Does that have? Pay? We bought it out on that one. What did that one do? How many clicks do you have here? How many downloads? How many clicks, how many clicks, how many downloads, and and the more that this becomes the way people make money, the more they're paying attention to it five years ago, they'd be like, Look, here's some money for ads, we hear good things about the podcast didn't even ask again. They were just thrilled. Now they're like, Hey, we have this AI thing that's tracking your every move. Could you put a pixel on this and a pixel on that pixel on this and I want to make sure that, you know, like, don't use the same link on Instagram that use on faith. I'm one person. I'm just trying to help people with diabetes. I'm like, I can't keep up with all this. Hey, you said phaeochromocytoma wrong in the ad like the Are you kidding me? Like Like I got close enough. Like nobody knows what it is.
Sarah 20:22:30
Nobody knows. Anyways, nobody can spell it to look it up on the Google
Scott Benner 20:22:36
tears except you and the guy you work for it now. Oh, by the way, God bless you. Volkova and I now know how to save your pheochromocytoma. It's fine. But, but like in the moment, you're just like, okay, alright, I'll go say it again. I figured out like I'm right now learning to say so fontal urea. So final? So finally you're in. So final urea. Yeah, I have to say it in an ad. So final urea. So follow urea, I've been watching a goddamn YouTube video of a woman saying it at a conference for a week and a half trying to get ready to record a 32nd ad. So I don't sound like an idiot. And if I mispronounce it, they'll send it back to me and say, hey, you know, you gotta You said so fontal. I'm like, Okay. Anyway,
Sarah 20:23:21
you agree and you redo them all. You redo the ads regularly, right? You don't just have one take and then just keep slotting them in, or do you do that? Sometimes I
Scott Benner 20:23:28
have a number of pre recorded ones. But generally speaking, I sit down during the edit and just I freestyle the ads. Yeah, mostly you don't know because I thought good, but I'm, I'm decent at it. So I like it's different. But it's not like oddly different where won't be helpful. And by the way, I want to just say that so final every so far, I'm never gonna get that right.
Sarah 20:23:47
Now you just got to slow your tongue down a little bit, then you'll get there. That's for G voc hypopyon.
Scott Benner 20:23:51
They are wonderful partners of the pocket like like wonderful and as his Dexcom and Omni pod and you know, contour and cheese all of them. Like I don't even want to miss anybody like a US med oh my god, US med is so, so great. Like you have no idea how they support all this stuff. I'm not complaining about them. I'm not complaining about the work. I'm just telling you and one person. Yeah, I was keeping up with it. But if Apple's going to come along and stand on my throat while I'm trying to say so final urea, well then it's gonna get hard, you know, in a main lake and so, oh, yeah, and I'm gonna go crazy. And I don't want to be crazy, Sarah.
Sarah 20:24:27
No, no, I know. I was one of the questions I wanted to ask you was like, what do you do so you don't go crazy?
Scott Benner 20:24:33
I just make this podcast I don't do anything else. Like you're all welcome. Like you're walking around with your goddamn six eight onesies come here and open a drape for me so I can see the sun. Like by the way, I'm not even kidding about that. I have no soundproofing drapes in my room so that the podcast sounds better. I don't even get to see the sunlight. I'm doing this. Yeah, yeah, and I'm not complaining. Like I'm not just don't make it harder,
Sarah 20:24:57
harder than it is like Just yeah, here's what
Scott Benner 20:25:01
I need. You know, most people would tell you I need world peace, happiness, blah, blah, I need for one in five people in the Facebook group to join, listening. And I need Apple to put their damn app back the way it was. And that literally changes everything for me. And you guys listening?
Sarah 20:25:20
Yeah, well, so it's, it's it's similar sort of similar but different. So you know, in most professions, the longer you get it, you go at your job, the easier it gets, and I'm sure there's parts of your job are more smooth, shall we say, than they were when you first started? You've got some finesse happening on all that kind of stuff. And the systems run better. But the job gets harder. It's not supposed to be that way. So in teaching, I've been teaching I teach part time, and you're at I've been teaching since I was a long time. 20 years, no, not quite 15 years, it's supposed to get easier. while the kids are getting harder. The kids are so much harder than they ever were. The job is harder, it's supposed to get easier, not harder. It's the same thing is happening for you is supposed to I'm good at my job. I know what I'm doing. Why is this still so hard? I don't mind working hard, but don't make it harder.
Scott Benner 20:26:12
Yeah, that is really the piece of it. I'm not gonna, I'm not quitting, like I'm not giving off, like, like, This podcast is incredibly popular, you can lose those downloads and still be orders of magnitude more popular than next thing that exists. So like, I have no trouble with all that. That's all fine. And well and good. But it just, it's crazy. Like, it's just crazy, that, you know, somebody could say, oh, I guess we're just gonna make this the number instead of that the number that they can get. And, and that's it, just like that i i am looking at it's two o'clock in the afternoon. And I know how many downloads I should have right now, based on how many devices have downloaded the show so far today. And this is pretty much I'm at 2021 numbers right now. And so they knocked me back two years. So now I'm gonna have to climb back out of that again, for two years, but you'll never know listening, like you're gonna get like, there's a great episode of today with a dad whose kid was diagnosed and they went on this road trip and it plays baseball, and you're just gonna keep getting that. I mean, once in a while you get me bitching like this, but other than that, like, you're not gonna know the difference? No. And it will be it'll grow again. That'll be that like, it's just it's going to but Jesus Christ, like, I feel like I climbed up a mountain, literally put my hand on the summit of it, and someone stepped on my hand and kicked me back off again. Push it back down again, is exactly what it feels like. So yeah, yeah. Anyway, I'm
Sarah 20:27:43
sorry. Because you're, you do such good things. So it's a shame when you when the good people get kicked. Well,
Scott Benner 20:27:50
don't think it hasn't occurred to me that while I'm complaining about this, your dad got cancer for doing the right thing. So I feel like I'm complaining about this right now. So, yes, okay.
Sarah 20:28:00
That's not a problem. Okay, seriously,
Scott Benner 20:28:03
I I'm a douchebag for saying this out loud. No.
Sarah 20:28:06
It's fine. You're allowed he could kvetch with the best of them, so don't worry about it. Please.
Scott Benner 20:28:11
I love to complain. I don't understand people who don't like to complain. What do you think about?
Sarah 20:28:16
My my daughter complaints? My type one complaint sometimes and sometimes I just sit down like Kay, wait, are you is this a listen or do you want some input? She's like, I just need you to listen. I was like, Cool. Okay, thanks for the heads up on that one. I just sit there driving the car. She's just bitching.
Scott Benner 20:28:29
I was like, Why do you complain? I'm like, I'm not complaining. I'm just explaining it. That's exactly I wish people know that the last 15 minutes. I wasn't complaining. Like I just this is how my process is I like get through things and figure them out. So you know, you have your process. I have mine. Leave me alone. Stop judging me. Absolutely. Thank you so much, sir. I appreciate it. You're most welcome. Thank you.
A huge thank you to one of today's sponsors, G voc glucagon. Find out more about Chivo Capo pen at G folk glucagon.com forward slash juicebox. you spell that GVOKEGLUC AG o n.com. Forward slash juicebox. I want to thank the ever since CGM for sponsoring this episode of The Juicebox Podcast and invite you go to ever since cgm.com/juice box to learn more about this terrific device. You can head over now and just absorb everything that the website has to offer. And that way you'll know if ever sense feels right for you ever since cgm.com/juicebox. If you're living with type one diabetes, the afterdark collection from the Juicebox Podcast is the only place to hear the stories that no one else talks about. From drugs to depression, self harm, trauma, addiction, and so much more. Go to juicebox podcast.com up in the menu and click on after dark. There you'll see a full list of all of the after dark episodes. If you're not already subscribed or following in your favorite audio app, please take the time now to do that it really helps the show and get those automatic downloads set up so you never miss an episode. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. The episode you just heard was professionally edited by wrong way recording. Wrong way recording.com
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#1246 Weekly Diabetes News 7/1/24
Topics include the US launch of Medtronic's MiniMed 780G system, promising research from Johns Hopkins on a monoclonal antibody for type 1 diabetes, and gene therapy advancements by Fractal Health. Scott also discusses legislative news on CGM access in Illinois and early developments in oral insulin formulations.
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or wherever they get audio.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends and welcome to episode 1246 of the Juicebox Podcast
I'm back with another quick episode to catch you up on what's in the news for type one diabetes this week this is for the week of July 1. Nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan.
sup everybody, I'm back to read you the news about diabetes. Nice to me, I'm just I scour the internet for you. I find stuff. It's interesting to me, I come here and I tell you about it. And 15 minutes later, you've got all that stuff in your head without any of that pesky reading. Hey, if you want to save 30% off of your entire order at cozy earth.com Just use the offer code juice box at checkout. And of course, when you place your first order for ag one with my link, you'll get five free travel packs and a free year supply of vitamin D. Drink ag one.com/juicebox if you have type one diabetes, and you're from the US or you're the caregiver of someone with type one, please go to T one D exchange.org/juicebox. and complete the survey completing the survey helps type one diabetes research and it only takes a few minutes. Before we get started, let me tell you about the 2025 Juice cruise. Now what is that exactly? Well, I'm going on a cruise. And I'm inviting all of you to come with me. This is going to happen in June of 2025. But if you register by August 1 2024, you're going to receive a $25 onboard credit per stateroom. This Cruise is great for you if you have a family with children with type one if you're an adult with type one or anywhere in between. I got a note the other day and said I have type two diabetes. I'm a listener and I want to come I was like absolutely Let's go. Everybody is welcome. Bring the kids bring yourself bring the fam. Let's get out in the sun meet each other really experienced community one on one and have a great time. Maybe you just want to meet other Juicebox Podcast listeners. Maybe you want to meet other people that you know from the private Facebook group or perhaps you just have never met another person with diabetes and this is your chance. We're gonna fill that boat with beeping. Understand, it's gonna be very real. What is that? Somebody's blood sugar's high. This Cruise is on the Royal Caribbean International's mariners of the sea. It departs Galveston, Texas on Monday, June 23. It's a five night trip with ports of call in Galveston Costa Maya and Cozumel. Now for two of the days of the trip, there'll be talks, I'll be giving talks meet and greets Q and A's, we're going to bring on some special guests to talk to and right now I'm going to start to reach out to advertisers of the show to see if they'd like to send out customer service people so that you actually have somebody from specific companies to ask questions of I thought that was kind of a nice idea. I'm working on that right now. I don't know if that's gonna happen. It's up to the companies. But we'll find out. If you want to learn more, go to the link or text Suzanne at 817-928-4930. That's poor Suzanne who's about to get a lot of texts. She's running the whole, you know, travel side of this whole thing. The Scotty side of it, if you go to the link, you'll be able to see the different state rooms, the complete charges that are you know, necessary per person, you'll understand what you're talking about before you reach out to Suzanne, or if you just want to reach out to her and get the conversation started. I'm sure she'd be thrilled to talk to you. All right, juicebox podcast.com, or link in the show notes or text Suzanne, and I'll see you on the ship in June. I'm very, very excited to meet everyone. I hope you can come bring the family. Now on to the news. So I searched a little bit did some looking around poking around because ADA is at fourth Scientific Sessions was last week. So I figured there's got to be some takeaways from ADA. Right. The American diabetes Association holds a big conference, there must be news. Here's what I found some interesting stuff. And some stuff that you just kind of expect companies are like our thing is good. Like, okay, well we know about that. That's not actually news. We know you think you think is good, and it probably is but we're looking for new stuff to talk about not just you know, we did a study and you know, there's less hypoglycemia if you were an automatic insulin delivery system. Yeah, thanks. We know how about this one I'm going to start here. Medtronic is launching the mini med seven ATG system in Oh, the US us launch of the mini med seven ATG system. The guardian for sensor that's interesting. includes advanced hybrid closed loop technology for automated insulin delivery. Sounds like they're getting their thing into the US. What else here? There are new therapeutic targets for diabetes discussed? Oh, really? I can't wait for that. Yeah, I can't wait for the establishment to realize that maybe your agency should be lower than seven. Boy, a lot of this is probably just going to irritate me, it's going to be stuff we've been talking about for, you know, 510 years on the podcast, where they're like, we've done a study and we've figured it out. There's health disparities in communities. How about that? Who knew? But this is just me being sarcastic with the news. I didn't expect that. But here we are. This is just, this is just research with mice at this point. But it's interesting enough. Where's this over at Johns Hopkins, a drug named M A, B 43. It's a monoclonal antibody. It's only they're doing mice studies right now, but prevents and reverses type one diabetes onset in mice potential for long term use with minimal side effects, beta cells begin reproducing an inflammation decreases. I'm excited about anybody who's looking into inflammation in the pancreas. Very interesting, led by a PhD here. Not a lot more than that. But, you know, I don't like to get too excited about things that work in mice, because they very often don't work in people. But still, I like the direction of that. Now, here's something I actually did find really interesting. I think this is more around type two. But it's very, it's very, very interesting. And here's why. Here's the overview of it. A recent study explored the effects of a single dose of GLP, one based gene therapy, on obesity and diabetes management in mice. Again, mice, but, you know, this is kind of interesting. The therapy is designed to deliver a gene encoded encoding GLP one, which is a hormone involved in blood sugar regulation, and this gets delivered directly to the pancreas. The mice were divided into three groups one receiving gene therapy, one receiving daily semaglutide injections, and one receiving a placebo. During the duration to the initially, excuse me initially followed for four weeks with a follow up period extending to eight weeks for some groups. Now here's the key findings. There was weight and fat reduction, the mice treated with the gene therapy experienced at 21% reduction in fat mass compared to a 16% with the semaglutide After four weeks, ooh. And after eight weeks that gene therapy maintained a 17% reduction in fat mass, even after semaglutide withdrawal. While the placebo group saw no significant effect, no significant change. Hmm. Significant improvements in fasting glucose and insulin levels were observed in the gene therapy and semaglutide groups at both four and six weeks. The third, the therapy resulted in a 36% reduction in total cholesterol and a 51% reduction in LDL cholesterol compared to placebo after two months. And they're saying here the potential is this gene therapy could offer a long term single dose treatment option for managing obesity and diabetes. It aims to provide durable weight loss, and improve metabolic control without the need for continuous medication. So it's something about listen, I'm no surgeon here, or researcher. But what I'm hearing is you take the GLP one, and you magic mix it somehow in a gene therapy situation. And then maybe you're re I don't want to speak for this thing. But maybe you're recoding how things are working. Anyway, it looks like a company called fractal health. They plan to progress the therapy through preclinical development and initiate first in human clinical studies in the first half of 2025. That gets a clap for me. Let's go fractal health looks like they're calling this drug. Is it read Juvia investor's clinical studies, our company I might reach out to them to get somebody on the podcast here. I mean, unless they're listening, and then just please send me an email. I have a lot of time for this. I don't have a lot of time to be sending emails. I'm very busy. Yeah, I don't know if they've got a PR I'll look through there. I'm gonna hold on to this. I might, I might, I might reach out to them. That's not a bad idea. What else do we have here? Did the Hopkins thing. Health Disparities, there's health disparities and communities they figured it out. They just did a research study. It only took a couple of years and they came back and they said things are not fair. Look at you got it. Let's see. Don't you know tandems got that Moby pump now? On the pod five works with Dexcom G seven.
I heard some news from ever since but I can't I gotta make sure I get the details. Right before I bring it to you. Maybe you'll hear about that next week. This is kind of local, but I find this very encouraging. Illinois has passed legislate legislation legislation, expanding access to continuous glucose monitors for Medicaid benefit beneficiaries. That's excellent. This move is praised by the American diabetes Association. It's praised by me too. That's good and more people should be doing that and more states 1,000,000% All right, kids. There's some older stuff here. It's not new news, but it's still stuff that pops up when I'm when I'm talking there's an oral insulin formulation developed by the Artic University of Norway that could potentially eliminate the need for insulin injections. That'd be cool. Very, very early on, but keep working on that for sure. And there was something here about let me find it. Let me find it intermittent fasting. Okay, I got it. This is a UIC research initiative on intermittent fasting with type one diabetes. The study lead Christa Verde, hey, Krista. What's up? You're famous professor of nutrition at the University of Illinois, Chicago. The focus of the study was examining the safety and effectiveness of time restricted eating a form of intermittent fasting for individuals with type one diabetes. I thought this was really interesting. She found there were no adverse reactions. How about that? She's talking about hypoglycemia, diabetic ketoacidosis. In the reviewed studies, participants experience weight loss and lowered average blood sugar levels in some cases. It's like there was a pilot study here. It's still ongoing comparing time restricted eating to calorie counting, and a control group was 60 participants. The recommendation after the study was a patient should consult with their doctors and well that's not great, Krista, but I think what you're really taken from this is somebody's out there doing a study about fasting with type one diabetes, where a lot of you would say, oh, you know, if I fast my blood sugar is gonna get low, where I would say, if your settings were good, you could not eat for quite some time without experiencing a low blood sugar. This is the takeaway here, right? Because people are always wondering like, how do I exercise my blood sugar voice false exercise without any active insulin. That doesn't mean you don't have your Basal going, but it's a really well timed Basal, a well considered Basal, so it's not dragging you lower. I brought this up mainly to remind you that you can exercise fasting and that that's probably a way for you to keep from having a low blood sugar while you're exercising if you have type one, but also Krista viraday. Professor, if you'd like to come on the podcast, give me a shout. I'd love to talk about this a little more. I think it's very interesting and timely, and I think it's important for people living with type one diabetes. Alright, that's it for Scotty reads you the news this week. Don't forget the juice crews link in the show notes link at juicebox podcast.com. And of course, how to do it again. Of course you could just text Suzanne at 817-928-4930 and say I want to know more about the juice cruise and Suzanne will go Why is my phone blown up like this but that's between you and Suzanne. I will not be giving you my phone number and also be very nice to Suzanne. She's lovely. She has type one diabetes. She's a travel agent and this was her brainchild. And she's doing the lion's share of the work. She's a lovely lady, and she'd love to get you set up on the cruise and of course I'd love to see you there.
Please support the sponsors
The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here. Recent donations were used to pay for podcast hosting fees. Thank you to all who have sent 5, 10 and 20 dollars!
#1245 Resilience: Privilege and Resilience
Episode 1245: Psychological Impacts of Diabetes with Erika Forsyth, MFT, LMFT
Marriage and family therapist Erika Forsyth explores the psychological impacts of diabetes on patients and caregivers. This episode delves into the anxiety and stress associated with constant diabetes management and offers strategies for coping with these challenges. Erika discusses how technology can both help and hinder emotional well-being, providing a comprehensive look at the mental health aspects of living with diabetes. Listen to gain valuable insights into managing the psychological impacts of diabetes.
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or wherever they get audio.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends and welcome to episode 1245 of the Juicebox Podcast
Erica Forsythe is back with me for part three of the resilience series. And don't forget to learn more about Erika, you only have to go to Erica forsythe.com. Nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. If you have type one diabetes, or are the caregiver of someone with type one and a US resident, you have a unique opportunity to make a significant impact on type one diabetes research right from your home in fewer than 10 minutes. Just go to T one D exchange.org/juice box and complete the survey. That's all you have to do. When you place your first order for ag one with my link, you'll get five free travel packs and a free year supply of vitamin D. Drink ag one.com/juice box. Hey, you like being comfortable? Do you like looking good. If you do go to cozy earth.com Fill up your cards with towels and sheets and clothing and all the things that will make you happy. And then use the offer code juice box at checkout and you will save 30% off of everything in that cart. Cozy earth.com use the offer code juice box at checkout this episode of The Juicebox Podcast is sponsored by us med U S med.com/juice box or call 888721151 for us med is where my daughter gets her diabetes supplies from and you could to use the link or number to get your free benefit check and get started today with us met. This episode of The Juicebox Podcast is sponsored by the Dexcom G seven made for all types of diabetes Dexcom G seven can be used to manage type one, type two, and gestational diabetes, you're going to see the speed, direction and number of your blood sugar right on your receiver or smartphone device. dexcom.com/juicebox This episode of The Juicebox Podcast is sponsored by the only implantable sensor rated for long term were up to six months. The ever since CGM ever since cgm.com/juicebox. Erica, we are back to do the third installment of our resilience conversation. How are you?
Erika Forsyth, MFT, LMFT 2:43
That's right. I'm well thank you. So yes, I have to keep reminding myself that the yes, the overarching theme is resilience because I know we're focusing a lot on trauma, but we're, it's all connected.
Scott Benner 2:55
If people listen to the podcast long enough, they'll recognize that my titles are not that meaningful sometimes. But I also think that resilience just leads into the conversation. You know what I mean? Like, I reached out to you and I said, Can we talk about resilience? That's all I said, and you came back with all this great content and these things to pick through, you know, what you found and what you knew, you know, which I didn't know, because I think this was just the thing I thought of while I was in the shower, if I'm remembering correctly, is that you know, this part about trauma that we discussed in the last episode? And I guess we'll kind of continue on with today as well as that, right?
Erika Forsyth, MFT, LMFT 3:32
Yes, I was thinking today, we could do a little bit of review and reflection, and then start talking a little bit more about the connection of privilege and resilience. That also connects to our talk a little bit more about the ACES today if we have time.
Scott Benner 3:46
So I want to hear all about that. But let me ask you this. I think that it's possible that we use the word privilege, you scare people, and they're looking for the stop button already. They're like, I don't need to be told I have privilege. So like I'm interested in, in how that unfolds. And I hope people like take a minute and listen to the that they can see the bigger picture. You don't just mean I don't want to tell you what you mean. So do your review. And then and then you ask then yes, I
Erika Forsyth, MFT, LMFT 4:13
know that that word can be has a lot of connotation and association. And what we'll get into is kind of thinking maybe the better question to think about is did you feel safe and secure growing up? Which is can be thought of as a certain form of privilege? Or do you currently feel safe and secure? And so we'll talk about how that is connected to your stress response system and whether or not you had opportunities to develop to develop resilience as a young person.
Scott Benner 4:47
Yeah. Because in context privilege is opportunity to be safe to be protected to be loved that kind of stuff.
Erika Forsyth, MFT, LMFT 4:57
And predictability. Hmm Have you an opportunity, minimal threat, and you experience stress and chaos? You still experience it, but it's in an unpredictable, controllable, manageable way.
Scott Benner 5:12
Okay, cool. You said you want to look back a little bit before me? Yeah,
Erika Forsyth, MFT, LMFT 5:17
I just thought we could review a little bit of what we talked about in the last couple episodes of the kind of capital T trauma, which is understanding what is trauma, we'd look at the event itself, and how did you experience the event? And then did you have any long lasting effects of that event. And if you are experiencing traumatic system symptoms, which I don't even know if we actually talked about last time, but if you are wondering if you are living from a traumatic experiencing a traumatic event, or having the past or continuing to the symptoms might feel and look very similar to depression, or anxiety, some of them you know, having flashbacks, intrusive memories, exhaustion, fatigue, anxiety, depression, changes in appetite, changes in sleeping, or irritable mood swings, you might be numbing by alcohol, or other drugs, you know, or other even ways to numb that emotional overwhelm that you're feeling. You might have difficulty concentrating, you might be kind of always on edge and irritable and like, you know, hyper arousal and hyper vigilance is one of the keys of PTSD, key symptoms. As we talk about trauma, those are symptoms as a result of trauma. But it can get confusing and maybe unclear is it? Are you experiencing depression? Are you experiencing the results, you experiencing symptoms and behaviors as a result of one traumatic event which we talked about the capital T trauma? Or is it that over a period of time, you might be exposed to the heavy days, many, like many, many, many moments of feeling invisible or not good enough or shamed, or feeling like you, you're gonna be feeling stupid, or that you don't quite get it or feeling othered over time, all of those moments of kind of small t trauma still trigger your stress response system so that you are actually responding as if you were exposed to a terrible hurricane or earthquake abuse. Right? So you're still your body's responding as if you had a big T trauma. So we talked about those two differences. Am i Does that make sense? Not only
Scott Benner 7:39
does that make sense, but you just I feel like somebody just threw open the curtains for me. I used to hate ordering my daughter's diabetes supplies, and never had a good experience. And it was frustrating. But it hasn't been that way for a while actually for about three years now. Because that's how long we've been using us med us med.com/juice box or call 888721151 for us med is the number one distributor for FreeStyle Libre systems nationwide. They are the number one specialty distributor for Omni pod dash. The number one fastest growing tandem distributor nationwide, the number one rated distributor index com customer satisfaction surveys. They have served over 1 million people with diabetes since 1996. And they always provide 90 days worth of supplies and fast and free shipping. US med carries everything from insulin pumps and diabetes testing supplies to the latest CGM like the libre three and Dexcom G seven. They accept Medicare nationwide and over 800 private insurers. Find out why us med has an A plus rating with the Better Business Bureau at us med.com/juice box or just call them at 888-721-1514 Dexcom G seven offers an easier way to manage diabetes without finger sticks. It is a simple CGM system that delivers real time glucose numbers to your smartphone, your smartwatch. And it effortlessly allows you to see your glucose levels and where they're headed. My daughter is wearing a Dexcom g7 Right now, and I can't recommend it enough. Whether you have commercial insurance, Medicare coverage, or no CGM coverage at all Dexcom can help you go to my link dexcom.com/juice box and look for that button that says Get a free benefits check. That'll get you going with Dexcom when you're there, check out the Dexcom clarity app where the follow Did you know that people can follow your Dexcom up to 10 people can follow you. Right now I'm following my daughter but my wife is also following her. Her roommates at school are following her. So I guess Arden is being followed right now by five people who are concerned for her health and welfare, and you can do the same thing. School Nurses, your neighbor, people in your family, everyone can have access to that information if you want them to have it. Or if you're an adult, and you don't want anyone to know, you don't have to share with anybody, it's completely up to you, Dex comm.com, slashed use Box links in the show notes links at juicebox podcast.com. And when you use my link to learn about Dexcom, you're supporting the podcast. I'm being being really genuine here, I was just having a conversation with a person whose details I'll keep very vague. But they experienced a significant amount of anxiety, they're medicated for it, they had a situation where the medication went away for a little bit. And they they told me they didn't realize how much the medication was helping them because as soon as the medication went away, it was overwhelming. And this person doesn't think of themselves as depressed. But told me that in their medical folder, it says, I forget the exact phrasing, but it's something basically says always sad. But they're not a sad person. But that's how the doctor sees them. They have this anxiety that they've been told they have without the medication and it's unmanageable. But when I think about what I know about their upbringing, Mother using pills, a lot of craziness. And you're talking and I think God is Is she not anxious? Is she not depressed? Is she just in a constant state of experiencing her younger life, and waiting for it to happen again, and again? And again? Like that's a really
Erika Forsyth, MFT, LMFT 11:40
interesting, actually. Yes. And because of her exposure to that, in her childhood, she is sensitized to that and kind of more aware, more, or like to maybe trying to anticipate, and trying to protect her body and mind from experiencing those feelings. Like we said last time, I think the research and information out there from trauma is still it's still new, in terms of how we define it, understand it and treat it, which is it's really fascinating. And then when we when we look at it through the lens of diabetes, that we talked about whether or not let's say you grew up in a very predictable, safe environment, as a child, then you are diagnosed, then are you having these micro moments that feel like trauma, because of how you're treated in the classroom, or how you're treated by others, or the shame that you experience constantly, if you do around your diagnosis and living with diabetes, or is it what we talked about the FFTs, you know, from Brene, Brown a first time experience, which is what we we do experience that as people living with diabetes, or caregiving where you're trying something new every time. And then you're having this expectation that you're supposed to kind of nail it because you did it. You nailed it yesterday. So I think that's where it's really kind of confusing and blurry. Are you experiencing some of those anxiety? Depression is that diabetes distress is that diabetes burnout? Is that as yet your body responding as if it were a trauma? Right, because of your past or not? Right? So it's, it's really blurry. And I think also really fascinating. And if someone wants to go do research on all of that, that would be I don't
Scott Benner 13:31
know how blurry it seems. I mean, it feels like it makes a lot of sense. You know, and I can even see how it could look like resilience. Because if you're, I'm going to use myself as an example, like I was around a lot of yelling, right? And it could be physical, sometimes not all that frequently. I'm trying to balance what the 70s was like, compared to what I would want to do now for my kids. So like, he got smacked more in the 70s. But it wasn't a full on assault DNA. I mean, that makes sense. But I grew up like that, like people were if he did something wrong, you got yelled at, there was a little bit of fear mongering to like manage you like right, there was always that like, It's good if they're a little scared feeling. I think of myself as very resilient, but maybe I'm just always on alert because of that, but it's manageable for me. So I look resilient. If it wasn't manageable for me, I'd look anxious. Is that right?
Erika Forsyth, MFT, LMFT 14:28
Yes. Because because of having a little bit of stress is is helpful. And somewhere within as we talked about last time, is it your genetics? Is it your family generational resilience that is ingrained? And I guess that's also part of genetics. But somewhere in there you as you were exposed to to stressful situations. You learned how to adapt and respond and overcome,
Scott Benner 14:57
but that could be as easy as it just got lucky and conquered a couple of them. So I build up some confidence. And then I have this expectation it's going to go well, etc. Can that look at? Can I ask a weird question? I don't want to get too far off the path because I'm really interested in this conversation today. But could that look like narcissism? Can confidence look like narcissism when it's not narcissism? What's the difference between knowing you're good at something, being confident that it's going to go well, and actually being a narcissist? Is there a difference? Oh, gosh,
Erika Forsyth, MFT, LMFT 15:30
they asked if, by the way, if you're interested in in narcissism, there's a really good book I just was talking about recently called The Wizard of Oz and other narcissists, just as theirs. So the question is, are you what's the difference between feeling confident and competent? Versus narcissism? Yeah, if
Scott Benner 15:51
I was speed dating with Superman, he was like, less than I'm very handsome, super strong, I look great in a bikini fly, you know, and you keep going online. He's just telling you the facts about his life. And like, so you don't mean by that? Like, so? Yes. Good. Well,
Erika Forsyth, MFT, LMFT 16:06
I think well, Nurse narcissism is a true is a personality disorder diagnosed by the fact that they're excessively you're self centered, you're preoccupied with your own needs at the expense of others. And so I would say, when you're confident, competent in something, you're still maybe you're holding compassion and empathy. Whereas oftentimes with people with narcissism, they need the attention, they want people to admire them. But they really lack the empathy piece, or I say, compassion. Okay, so that would that I think that would be the marker of the difference.
Scott Benner 16:45
Perfect definition. I just wanted that out there for moving forward. That's Yes. Great. Thank you. Okay, I'm sorry, do you know where you? Did I cut you off to the point, you don't know where you
Erika Forsyth, MFT, LMFT 16:53
are? No, we're good. So okay, so we're talking about these three, kind of three different layers, how I'm envisioning is like these three different buckets. But they can also be layers of like this big T trauma, this kind of one event incident, these multiple moments of really feeling invisible, you experienced that fear that feeling of of not accepted, or not good enough, that can also lead to the trauma experience, and the third bucket of doing something for the first time, which can, you can have these moments of feeling doubtful of anxious of sadness, of loneliness, but over time, that doesn't necessarily lead to a stress, it's not triggering your stress response system so that you're having traumatic symptoms. Okay. So with that, I think if we're looking at going back to diabetes, and understanding trauma, as the way Brene Brown defines it a situation or environment over which you have no control, thinking about this from the context of mean, we feel like that all the time, you can feel like you have like you do all the right things, and then you still skyrocket or you still plumb it with your blood sugars, or you still experience the emotional toll. That can be feeling like you're in this constant traumatic state. And I was just envisioning, you know, I know, we talked, we've talked about your history. But imagine, like if you grew up in chaos, where stress was unpredictable, was uncontrollable. And then you learned you had these kinds of adaptive behaviors as a child to say, Okay, I'm going to, I'm going to try and feel safe in this environment by trying to predict, right predict outcomes, I'm going to try and figure out how can I be safe, I'm a trade control as much as I can, or at least tell myself I'm going to control as much as I can, I'm going to be a people pleaser, and avoid conflict. Those were all adaptive behaviors as a as a child to feel safe, then you get diagnosed with diabetes. And I think I feel like I see this and I hear this a lot on the on your podcast, as well as like, how could you not I just thinking about this question of how could you not go into a shame spiral or experiencing severe anxiety, depression, if you feel like you can control things, right. And then you get diagnosed, you're like, oh, my gosh, not only am I out of control with this diagnosis, but then feeling that sense of out of control, particularly in the new so you know, first year or when life changes, you experienced this kind of, like you're feeling out of control, you thought you could control everything, and then consequently, you're experiencing these kind of traumatic moments. I thought that was important to kind of note and reflect on. And so if you're listening and you're hearing that, I think it's really important to understand, like, what is what's the story, what's fueling this response in this behavior? Is it Just the diabetes, usually it's not, is it your childhood trauma is that all the other things going on in life that are feeling unpredictable and scary and overwhelming. And then you're you felt like you could live a life trying to be in control, and then you realize you aren't a
Scott Benner 20:17
you could live your whole life having impacts from this and not have any idea what it's them from. And just thinking, I'm an anxious person, or because I hear people say it all the time. Like, I'm just an anxious person. Yeah, right. Or, I don't know, I just am always expecting the worst thing to happen and blah, blah. But I've tried this a number of times, when I'm making the podcasts, I'll say to somebody who says somebody that I'm like, Are your parents alcoholics? And a lot of people will say yes, because alcoholism is pretty common. And so like, they'll say, Yes. And then they don't, they don't understand the connection between it all. And then you say a little bit of like, you know, the, some of the things you've just mentioned, like, you know, always being on alert or things being so like, you know, haphazard one, one minute, everything's fine. The next minutes not, is that exact explanation of what anxiety is, you're trying to be ready for something that you have no idea if or when it will ever come? That's anxiety, right? And yes, yeah. And so, if it's always looming, whether it's really there or not, you're still going to feel that way. And then I think the part you don't get is like, even if it's not, like, let's say, it just doesn't exist in your life anymore. But you still have the response, you come off strangely to your spouse or to your family, who then wants to know, why are you acting so strangely, and then you don't know you're acting strangely. And then these weird interpersonal, like, underlying issues come and they build on top of each other and build on top of each other, until you're in these problems, and you don't understand how you got there. And now I'm trying to imagine on top of that, you have that feeling already. And then you or your kid gets a chronic illness. Holy Hell, I knew it was coming. Eric, I knew it. I knew it. Here it is. And then your body rewards you by giving you more anxiety. Because see, this was really valuable for us. I told you something bad was coming. But is that kind of the point? Is that the path it takes? It
Erika Forsyth, MFT, LMFT 22:17
can I mean, and that's part of, you know, anxiety connects to a lot of the distortions you were just talking about, right? Like the magical thinking, or the catastrophic thinking, that's worst case scenario, thinking. And the trick we talked about, in my practice, you know, that anxiety lies to you, and says, Will you be prepared, be prepared? Because you never know what's gonna happen? And you think that that's going to reduce the pain? If and when something bad happens. But no one has ever said, Gosh, I'm so glad I worried about this thing happening. Because when it happened, I was I was so much more prepared. It felt it didn't feel as bad. Yes. That
Scott Benner 23:00
never happens. Fear is a waste of imagination, is what it ends up being. But anxiety is different than fear. Right? Yeah. Yeah. I
Erika Forsyth, MFT, LMFT 23:07
mean, they can be connected. But yes, yeah. But
Scott Benner 23:10
what yeah, not to dig too deep into it. But you can find reasonable things to be like, That's a scary thing. I should know how to I should know how to unlock my car in case I have an accident. You know, I have a seatbelt cutter. And a thing that breaks the window like, oh, that sounds like anxiety. But if you had a car accident as a young person, or someone was able to market to your anxiety properly, I could make anything sound necessary. I mean, a good salesman could could sell you anything. I don't know, this is all just very, I don't know if I'm being articulate enough. But I think that many people listening to this can say, Oh, wow, I did have either large T small t first time, trauma in my life as a child, I can see now that I that is still something I'm worried about. And then we have to make the leap to believe that that underlying anxiety is coming from that. I bet you there's a fair amount of people who think what you're talking about is Hocus Pocus, like, you know what I mean? Like, like therapy and talking about your past, there's plenty of people are like, just get over it. I don't know that that's a thing. You'd even know what's happening to you to get over. If that makes sense.
Erika Forsyth, MFT, LMFT 24:22
Yes, I think it's, it's important, I believe, obviously my profession to understand why you're doing or thinking a certain way. And sometimes it's because of what happened to you yesterday. But most of the time, it's about what happened in the past and how your core your neuro pathways, your stress system, everything was formed. And you don't have to spend years looking back at all that right. But I think it's important to just spend a little time to look back and say, Oh, this this all these things happen. That's why I, when I hear this sound or smell that thing, or someone says this thing to me, or I have to prick my finger, I experienced these things,
Scott Benner 25:09
right? I get worried as we're talking about it that some people see themselves as so autonomous and conscious that they don't think about anything that happened before. It's this, you know, the wind blew I squinted, I made that decision. Like you don't mean like I am only who I am right now. I'm not a collection of the things that have happened to me in the past. But today's podcast is sponsored by the ever since CGM, boasting a six month sensor. The ever sent CGM offers you these key advantages distinct on body vibe alerts when higher low, a consistent and exceptional accuracy over a six month period. And you only need two sensors per year. No longer will you have to carry your CGM supplies with you. You won't have to be concerned about your adhesive not lasting, accidentally knocking off a sensor or wasting a sensor when you have to replace your transmitter. That's right. There's no more weekly or bi weekly hassles of sensor changes. Not with the ever sent CGM. It's implantable and it's accurate ever since cgm.com/juicebox. The Eversense CGM is the first and only long term CGM ever since sits comfortably right under the skin and your upper arm and it lasts way longer than any other CGM sensor. Never again will you have to worry about your sensor falling off before the end of its life. So if you want an incredibly accurate CGM, that can't get knocked off, and won't fall off. You're looking for the ever since CGM ever since cgm.com/juicebox. And I do think that's, I think a lot of people believe that I think a lot of people think therapy's meaningless because of those beliefs. And if you feel that way, that's great. But listen to what she's saying here about, you can all trace your life back a little bit and see moments where you're like, Oh, my God, that did happen to me, or that was scary. And so if you're one of those people who says like, I don't like being told what to do. That's a great one, right? You ever hear people say that very proudly? I don't like being told what to do. You know? And you're like, Well, yeah, it's because somebody controlled you, you know, at some point along the ways, and this is you trying to keep that from happening again. But there's also somebody out there who likes to be told what to do. And we're probably being controlled the exact same way. But for reasons I don't know, they it was comfortable to them instead of off putting and I don't know, I think what you just said about knowing yourself, and knowing why you feel the way you feel. I think that's at the core of anyone's ability to live a healthy and comfortable life. But, you know, get a podcast, talk about yourself constantly. You'll figure it out pretty quick.
Erika Forsyth, MFT, LMFT 27:55
Oh, my gosh, okay. Well, yes. Okay. So we'll end it just on that last thought on that point. It can feel scary. And you might not even know, if you do have a sense of what is causing or driving some of your thoughts, behaviors, that it can feel scary to do that. And so you know, there's no point in opening that box. But you also might not even know what's there. Sure. And that can also be overwhelming. Yeah. are scary. How
Scott Benner 28:26
can I tell you the reefer story, and then you can just move on, I'll let you go. I just put an episode up last week. It's called after dark prison, a female in our 30s mother of a few kids. And we spent an hour and a half laying out her life like she came on because she had been to prison with type one diabetes. And I wanted to hear about that. But the interview just went. I mean, it went so well. I'm proud of it. It went so well. And we basically dug through her early life of a lot of verbal abuse from her parents, from her dad, and no defense from her mom. And eventually she ends up in foster care. And then there she meets other people who were not treated well. And now they have the Justice League of foster care kids. So now they can break more rules and do more things. And they're all stunted at some point in their life, right? They're all kind of frozen wherever their trauma happened. She gets out of foster care. As babies the state takes a baby from her big trauma, right? Then she has more kids with a person who she shouldn't have been with. And then he's a criminal. And then she becomes a criminal. And then she defraud the government somehow gets caught, gets thrown in jail for two years during jail times treated terribly with her diabetes on and On and on and on. And I hope when people listen to that story, I mean, you can hear it any way you want to. And I'm not saying she didn't make decisions along the way that she could have made better she absolutely could have. But if you look at her as a whole story, and not just a caricature of a person who's been in jail, somebody abused her when she was little, and it sent her on a path. And then she met more abusive people. And to the point where she said at one point, she thought, because she knew how to vacuum and clean, she was better than the other people that she knew. That was her Mendoza line for success. She's like, I know what a vacuum and clean and I'm like, Oh, my God, like no one taught her anything once ever. And now you look at her in her 30s. And you want to be able to, and people want to judge her, they want to go look at her and go like, geez, yeah, there's no resilience here. She gave up everywhere along the way, broke every rule she could she didn't, you know, she didn't work hard. She didn't do anything like that. Yes, but what if someone would have been kinder when she was four, like, you know what I mean, like, and that's a bigger and more kind of ham fisted example. But some version of some of that happens to a lot of people. And maybe it doesn't end up with you in jail, maybe it just ends up with you in a personal, you know, relationship where it's always just a little contentious. And you don't really know why, or something like that. Like, I just think that that's important to know that, that what happened to her, on some level or another probably happens to almost everybody, and all the things that we've talked about in the past so far, your genetic makeup, the situation you're in the privilege you have of being loved by somebody, you know, because what a difference it would be to have a car accident as a seven year old and be surrounded by supportive people, or have that same car accident, and not have support, and then let that trauma tumble away and suck you down some sort of like, you know, siphon, anyway. Yes. Yeah. I feel like I don't have any clear thoughts on this. But I feel like I have a ton of them. I don't know how to put them together, if that makes sense.
Erika Forsyth, MFT, LMFT 32:12
Yeah, I get that. Okay. Because it is it's it's so rich, and intense and important. But it's hard to lay it out in a very clear, clean outline. So I think we're trying to figure our way through here. I
Scott Benner 32:27
just hope that people listening can do it for themselves. Because what this really is, in my mind is a star map. Like you're the planet in the middle, and all these other points of light around you have pushed you pulled you influenced you helped you hurt you loved you not loved you along the way. And that those are all the reasons why you are who you are. And then we meet people as adults, and we say stuff like, she's a bitch. It's not that simple. Right? Right now, it's not my job to fix you. But it should be, oh, God, I'm going to sound like a hippie. It should be. It should be our jobs, to at least look at people and say, you know, there might be a really good reason that this is happening. And why don't I try not to be one more reason for this to go wrong for them. You know, you can say it any way you want, like Be the bigger person or whatever, or, but you know, when it all comes down to it. I follow David Foster Wallace his advice, and when somebody cuts me off, I assume they gotta go to the bathroom. They're not just being a jerk. They're probably just being a jerk, Erica, but it doesn't help me to feel that way. So I just give everyone the benefit of the doubt.
Erika Forsyth, MFT, LMFT 33:44
I love No, I love that. Because that's that's your you just answered the question. You know, there. There's a story. What's the story fueling the behavior is what I think either Brene Brown or Dr. Perry usually asked. Yeah, there's there's always something underneath. And
Scott Benner 33:58
that's your it's very important to you, as you're figuring out your thing, but to the outside world looking in my perspective is it doesn't matter. It doesn't matter if they have a good reason for being like this or not. It doesn't benefit you to walk around thinking that everybody's a piece of shit all the time. Like it's just it's hard on you. You don't I mean, like and why do we want to assume that people are bad on purpose? That's a weird thing, because some people don't feel that way. Right. So even that's an impulse from a variable from your past, right? Yes. Yeah. Okay. I'm sorry. Okay. I could No, no, that's good forever. So go
Erika Forsyth, MFT, LMFT 34:41
ahead. Yes, me too. Yeah. Okay. I was just looking up. I think we could maybe transition into talking about the aces, which I just was looking at the time it was developed aces or adverse childhood experiences developed in 1995 by researchers Vincent the Ready, Robert, and their colleagues at the Center for Disease and Control Centers for Disease Control. So thank you. And this is a tool that they started implementing and using it didn't really it hasn't really good didn't gain traction until a few years ago. I think we talked about that. And it's a it's a questionnaire, you could you could look it up right now, and take it, but it's for questions for adults, so 18 and over, but they're asking you if you experienced any of these 10 bad things before the age of 18. And these are things like, you know, consistent conflict in the in the household divorce, abuse, addiction, and neglect. And from the recent data, they have discovered that 60% of the population of the adult population has experienced at least one of these things before the age of 18. Jesus, really? Yes, 30% of the population has at least three or more. And what they discovered from these results is that the higher the score, the more risk there is for health disease, mental health problems, relationship issues, etc. Can I read them real quick? Yeah, please. Yeah, wait, I just kind of summarize Go ahead. Physical
Scott Benner 36:20
abuse, emotional abuse, sexual abuse, emotional neglect, physical neglect, parental separation, or divorce, mother treated violently, substance abuse, mental illness, incarceration. How many people have three or more
Erika Forsyth, MFT, LMFT 36:37
over 60% 30% of three or more 60% of have at least one. So this is so when we talk about I think it maybe it's important to yet to talk about the aces in conjunction with this idea of growing up feeling safe and secure. So if you grew up in a household, that the the stress, the pattern of stress was predictable, it was controllable is more moderate. That is a privilege in general, not like we're not talking about capital P privilege, that's that is a privilege. And that pattern of stress that was moderate controllable leads to more resilience, because like we talked about in the previous episodes in the in the parenting series, as well, you experience a little bit of stress, and then you come back to a safe and, and loving parental figure. And that's how you develop the resilience. And because of that, then your stress response system is more regulated. And that leads to as Dr. Perry says, a cascade of secondary and tertiary benefits because you're more capable of managing stress. So now, if we think about that household, and then juxtapose it with, if you grew up in a household where you had one, or three or more of these adverse childhood experiences, you are at greater risk to develop these other issues, health issues, mental health issues, relationship issues, problems with your profession. And what the studies one study from the Department of Health and Human Services found that while all children are at risk of aces, numerous studies showed inequities in these experiences. And these inequities are linked to the historical social and economic environments in which some families live. So that's where it this this conversation around environment, your family, is that that privilege, but then also is connected to how you were able to develop resilience. But also, it's important to note that even children who were exposed to a lot of these aces, they also showed, I don't have the numbers here but had a height. A lot of people demonstrated resilience despite these aces. Yeah.
Scott Benner 38:58
So it doesn't befall everybody and ruin them. But yeah, it certainly could. And also, you have to start thinking about the numbers inside of the numbers, like I listed 10 things. And but then go ask yourself, like how many people have mental illness? And how many people experience you know, spousal abuse or how many people and you start looking at? I mean, if there's 10 options, and each option has a fairly big percentage of likelihood, then the likelihood that you're covered by a number of these, this is significant, or at least I mean, I looked at it, I've got a couple of these from growing up to you. Would you mind we never talked about you, but do you have any of them? I mean, look at the list again, probably physical emotional, sexual, emotional neglect, physical neglect, separation, divorce mother treated violently substance abuse, mental illness, incarceration,
Erika Forsyth, MFT, LMFT 39:50
not clinic No, not clinically, I would have to say I grew I definitely had a you know, a very predictable all controllable household Yeah, then there's the diabetes factor, right, which happened younger. But that anyway, I'm gonna pause there. Also,
Scott Benner 40:09
there are significant impacts from having a chronic illness too. So you could just find problems in a different spot like so even if you grew up, luckily, do what you call privilege. I call it luck, like in this in this context, right? If you luckily did not experience any of these things, and you still got type one diabetes, there you go. Like there's your big T right there, followed by a whole lot of baby T's come in forever and ever and ever with low blood sugars. And, you know, here's your juice box, you know, Do this, don't forget your meter, like all these other little things that we think of is not just important, because they are not just safety things because they are but they're little, I think of them as like, little dings on your soul. You know what I mean? Like, over and over again, like you're trying to leave the house, you're running out the door, you're feeling like a real person, and then somebody looks and goes, Don't forget your kit. Oh, yeah, I have diabetes, I got this bag. You didn't even like, hey, you know, you're gonna go play at the park. That's great. Hold on, what's your blood sugar before you go? Like that, like thing thing? You know, let me just get you over and over and over again, little bits, little bits, which is to say like, I wouldn't stop doing that if I was a parent. I mean, I try not to be overbearing about it. You can't just forget that you have diabetes. But there's that. I don't know what the feeling here is, though, is, you know, you come out of the womb, and hopefully you're, you're at 100%. You know what I mean? And then something happens. And sometimes you dip down and you get to come back up again, right, you get a cold, you fight the cold, you come back up again. But some things you get. And you never can re ascend all the way. And if you start having a number of those things happen to you know, that's the pressure and the weight of life, right? Like I can't get out from under these things that have happened to me. And then you get these little, these little bits here and here. Like my friend of mine struggling just to get there CGM is right now having these long arguments and conversations on the phone arguing with insurance companies and going back and forth. And you think, Oh, no big deal, you have insurance, you're lucky you'll get them. But after hours on the phone having to say to somebody, give me this thing, that you know what? I don't really want, I just need it. Like you don't even mean like, like, so I need this thing. You're telling me I can't have it. I've explained to you 1000 times I have diabetes, I've had diabetes for years, you know, I have diabetes, why don't have to reprove it to get like, Why do I have to sit down and go over it again? Like, why do I have to relive the fact that I have diabetes with you to get this thing that I don't really want, I just need and that I'm telling you takes a little piece away. And if you're lucky, you can rebound in any mean? Yes.
Erika Forsyth, MFT, LMFT 42:46
But even let's say you don't have any of the aces or major T traumas. But that scenario that you just described, over and over and over again, whether you're the person living with it, or a caregiver, that is stressful and triggering your stress response system. And that's over time, that does become the big T trauma. And so I just wanted it. I know, we've said that, but I think it's important to really highlight that that is as if you had this one event, but it's also
Scott Benner 43:15
a good example for why like all the sudden you lose your shirt on a neighbor who's like, can you eat that? And you're like, you know what, here we go. Like, I'm gonna let it all out right here, because you don't know that's gonna happen. Like you don't I mean, like, what, just one day, it's just too much. And it just tips the other way. What's that? Slowly I turned? What's that old movie? And like, so like, I don't know, I'm not referencing things I haven't even seen. It's like that kind of push you over the edge moment. And I don't think that like people don't just go off half cocked, they have these little things that happen that build up. And then like you said, all the sudden, it all gets pressed together and do it into a ball. You can't tell one little trauma from the other one. It's just this horrible feeling I have now that exists because I have diabetes or because something else happened to me that I can't like and then I look over here and this person's got all these same problems, too. And they seem completely resilient. And they're just smiling and tripping through life gone. Oh, yeah. What are some of the lessons you've learned from diabetes? You like, like, I always hear that conversation. And I'm like, I believe in it. I don't want to go down the wrong rabbit hole. Like I believe in it. I believe that I am better off because my daughter has type one. I also believe that I would be happy to give away all the things that I'm better off about. If she didn't have it. I think she's better off to I think I do think she's more resilient and blah, blah, blah. But if I was a piece of she didn't, that resiliency wouldn't have come to her it would have been something else and then she'd be running around going No, there's nothing good that's come from diabetes. Then two people online, argue with each other all day long about it. Oh though, there's plenty to learn from type one. I don't care. I have all these problems like, again, it's Those little like points of light that surround you, that changed your perspective and their perspective, your planets pointing one way and there's pointing another way. And that's where all these little arguments come from all the time when I see people arguing about, you know what, you know, if you want people with type one diabetes to argue Erica, go on Facebook and say, Hey, how do I get a disability? Pass it Disney live,
Erika Forsyth, MFT, LMFT 45:23
but yeah, I've been seeing those conversations. Yeah. We're
Scott Benner 45:28
not disabled. Yes, we are. No, we're not. Yes, we are.
Lija Greenseid 45:31
I can't stand up that low. My blood sugar gets low. Yes, you can. I ran a marathon back and forth, and back and forth. And I just want to get in the middle of it and go, stop. Why does it matter?
Scott Benner 45:42
She needs the past. You don't move on. Alright. Right. But it's not that easy. Because of all of this, that you were telling me about? It's freaking me out. This conversation is freaking me out. Just so you know. I'm so sorry. Aces were? Yeah. So
Erika Forsyth, MFT, LMFT 46:00
aces. I think the we're talking about you know, the, when you experience it, how you experience it. Also, I think it's important to not only talk about what happened to you, but also what didn't happen, like what, what was not there that you may be needed, which was that safe and secure. environment. And what you're talking about is Dr. Perry says your your ability to enjoy the world and enjoy others is related to how regulated you are, which is directly related to what happened to you? Because if are you operating from a place where you feel safe and secure? are you operating from a place that you're constantly aware and wanting to respond in fight or flight or protect yourself. And when we're talking about if you feel safe and secure, then you're also able to be more curious and go out and explore the world. And I was thinking about this in terms of your how you manage the diabetes, right because some people leave the hospital with their pomp and their CGM on or at least mostly their CGM, some people aren't able to do that. There's all different reasons why. And then some people are more comfortable saying, Okay, we're going to switch from injection to pump or we're gonna go eat this thing on day five, or we're going to, or we're not. And I also from this kind of framework of trauma, I was thinking about, is that related, if you're under threat, you're feeling under threat, you aren't very curious, or you aren't feeling very confident in trying new things. But if you are from either historically, from your family of origin, or even present day feeling safe, secure, are you then able to make those jumps or try new things in terms of your management? I don't know. I just thought it was an interesting point to think about,
Scott Benner 47:59
my son's looking for a job right now. And I said, Hey, listen, I just want to tell you, I think this is all gonna work out for you, you know, if you're feeling worried, or like pressure or anything like that, I don't think he shouldn't. He goes, I don't feel that way. And I was like, and so I go, not law. And he goes, No, I know, you guys got me. I was like, Oh, okay. That was it. That's the same thing you're talking about in slightly different contexts. Like, he's like, No, it'll be alright. I know. It'll be alright. But he doesn't know. It'll be alright. He believes it. Because we set up a safe, secure, loving place for him to live and to and to grow up. And his experience is that things work out. Not always quickly. But in the end. Yeah. So he can take risks, which and because he turned, he turned a job down because he was like, this isn't what I want to do. And it wasn't like a malt. Like, you know, like when I don't know what generation of these kids now I have no idea. I don't keep track of that stuff. Like I don't know if I'm an extra Milena. I don't know what I am. Well,
Erika Forsyth, MFT, LMFT 48:59
what? What year was he born? 2000. Say that is? Well, Gen Z. He's Gen Z. Technically,
Scott Benner 49:09
it seems to me like that's a statement where people be like, Yeah, well, his generation, like, they don't care about this, like blah, blah, blah. Like, it's not like that. He just, he has a plan. He is going to execute the plan. There's certain experiences he asked to get from jobs he offered, he was offered a job. And it wasn't, it would have just been a job. He would not have been able to get the experience and he has the luxury. Oh my god America, he has the privilege to say no to that job, because he knows the next one will come along. Whereas when I was his age, it would not have mattered what job you offered me. I would have said yes. And I would have taken it like literally I worked in a you know, I've worked in sheet metal shops, I've collected credit card debts, I've cut lawns, anybody who stood in front of me and said if you show up here at this time, I'll pay you. I was like okay, and I was there and I did not have any problem. Obviously, Okay, interesting. All right. I
Erika Forsyth, MFT, LMFT 50:03
think you know, when one thing I will share, you know, you asked me about my aces. When I think about my my family history in relation to trauma, I was just thinking about I was diagnosed at age 12. Two years later, my brother was diagnosed with type one when he was 10. And then a year later, our house burned down in the Laguna Beach Firestorm was there a lot of lots of houses. So I, when I think about my parents, and like, that was a lot for them to endure. And we got through it, there was a sense of like, resilience, like this is hard, but it was maybe leaning more. So in the like, we can do this and not as much space for like grief, which is probably why I do what I do now. But the I think about my dad and all that he endured, was had a lot of trauma growing up and built a lot of resilience in in response to that. Yeah, and leaned into the like, we can do this mindset. And so I think there's so going back to like, why is it important to look back as to how you operate today? Your history is rich with evidence, right?
Scott Benner 51:08
So if you if you're hit with something that requires resilience, and you have it, then you get a story like your dad's. But if you're hit with something, you don't have it? Are you doomed? Or can you recognize it? And go back and find these things? I mean, I know you believe that that's possible, you probably wouldn't do what you do for a living, but like, but what's the step there? Like, if you're listening to this right now, and you go, I am anxious all the time, and there is no reason for it. And I heard a couple of those things. That aces list, I did live through that. And then my kid got diabetes, and oh, my God, I feel like this. What do you do? Like you only mean like, what do you do that? Like, because listening to a podcast isn't gonna fix it? Like it might make you aware of it. But it's not. There are some people who say if you give something voice, it does clear it which I have seen work for some people, but for a lot of people, you're going to need help, right? Yes.
Erika Forsyth, MFT, LMFT 52:00
And that what you just said, that's part of what therapy is, is speaking something out separating yourself from that. But if that's part of your narrative, you don't even understand why Yeah, and how its how that is impacting you, just by speaking it out in the presence of someone else to hear it and validate it, and then help you differentiate your story from your past your current story,
Scott Benner 52:26
can you tell me what's the significance of saying it in front of another person?
Erika Forsyth, MFT, LMFT 52:30
Oh, it's for it to to know that it to recognize that it actually happened, that there is pain in that story to be heard and validated in an objective way. So I'm not going to be saying well, you should have done that. Or, like, why wouldn't did that happen? That way? There's, it's clear, it's just being giving space to something that happened to you by speaking it out in the presence of an objective listener is therapeutic, because you are able to simply be validated that that happened is the is the biggest first therapeutic tool, right to say, Wow, that sounds like it was really intense.
Scott Benner 53:15
Oh my god, Catholic confession. That's the That's, I guess, the basis of that idea. So okay, so here I am in 2024, realizing something that I guess people have known for hundreds of years, but nevertheless, sort of longer, but so just saying it out loud to somebody who won't, who will just hear it, because you can't just say it to yourself, you can't go into a room and be like, I murdered a hobo. Like that doesn't make it go I don't know why I said that. Because I think it sounds funny, and I know that that's not like, you know, like I just I gotta like Friday night, I went out I got crazy. I did some coke and I killed on faker. Like you can't say that in a room and make it go away. And not that you could ever make obviously murdering your person going away is a big example I shouldn't have made but but like, if you go into go in and sit with a priest and say, Look, I did this thing. It alleviates some of it. Saying it to yourself doesn't make it go away saying to somebody else does make it go away. Also, I believe if you say something like that to a priest, they do encourage you to turn yourself into the police. If I was
Erika Forsyth, MFT, LMFT 54:19
that from personal experience.
Scott Benner 54:22
I think it's an episode of mash I saw but okay. But if I go to you, and I say, Eric, I, what happens there? What's your legal? I know this is a weird turn. But if I go to you and I say Hey, I think I killed somebody with my car the other night. I'm not sure. We're just the legal legality, why
Erika Forsyth, MFT, LMFT 54:45
there's tariffs off rule, which is I am mandated to report you if you come in and tell me that you are thinking about harming somebody and then you you can. You've identified who that person is As I would have to then report that, if it's in the past, I think it really? Yeah. If it was conditional, yeah, it kind of depends.
Scott Benner 55:09
Interesting. Oh, all right. Okay, this all seems important, for reasons that I can't exactly put together right now. But like, what I'm trying to, I guess what I'm trying to like peel apart here is for people who don't see the value in going and talking to somebody, like, what does that accomplish for them? You put it into words, I still think it's a little nebulous for people listening, like, but I know for sure that saying it out loud, is very valuable. Like I'm 100% certain about that. Yes,
Erika Forsyth, MFT, LMFT 55:40
it decreases the your isolation from that experience, any kind of shame, or you're, you've lived in a space where you've kind of minimized it, where people might come in and tell me stories, and I'll say, that is significant. Trauma, like not overuse trauma, but real, real trauma. And they're
Scott Benner 56:00
like, Oh, my, there's like, just like a whole hot pan on my arm. Right, right. Right. Like that kind of thing. Gotcha. Okay, yes. And
Erika Forsyth, MFT, LMFT 56:08
so it's bringing to life, my pain that you've been carrying, and then learning how to grieve, heal and heal from it eventually, right? But just by speaking it out loud in the presence of someone who can be an objective listener and validate it is so powerful for the human spirit. Because you might not know how to validate it for yourself or even know that it needs attention, right? Until you speak it out. Do
Scott Benner 56:35
you need the forgiveness piece to somebody? Because you don't offer forgiveness to people, right?
Erika Forsyth, MFT, LMFT 56:40
Most people know I mean, that's that's their journey, right? If someone is living in a space of of shame, and guilt, for whatever reason, that's their journey. And sometimes it looks like forgiveness. Sometimes it looks more like acceptance. It really is. Forgiveness is a complicated concept also to be worked on, and addressed in therapy, because you
Scott Benner 57:01
can I guess you would contextualize what they did, which might lead them to be able to accept it, which could look like forgiveness. And maybe just make them feel a little better. But then you got to go. Wow, all this stuff. I never really thought about how like 12 steps or you know, all these other like, they all have little pieces of unburdening yourself in there. Interesting. Wow, that's very complicated being a person. slightly complicated. I'm sorry. Is there something else you want to talk about that? I
Erika Forsyth, MFT, LMFT 57:36
think? Maybe, do we pause there we can go into the you know, classic PTSD, but maybe we I don't know what our timing is, like. Save that for next time. Okay.
Scott Benner 57:48
Yeah, I'm happy to I'm happy to. Oh, I see your your part here. Yeah. This was a big part. Part Three. Yes. And then I and then I got chatty in the middle and screw that up for you? Well, I mean, yeah, well, we'll just do it next time, we'll just do PTSD and chronic illness. In our next conversation. That's all.
Erika Forsyth, MFT, LMFT 58:07
Yeah, I think in general, but you know, we're from today understanding, I think a that how, how are you experiencing? Or are you experiencing trauma? In what capacity? Did you were you exposed to one of these adverse childhood experiences? And if so, and I think your question going back to like, what do you do about it? With, you know, you're realizing, gosh, I did have an ace, or I am or I didn't, but I'm experiencing these traumatic trauma symptoms. Yeah. And I think understanding what people are like, Well, where do you start? Oftentimes, people come into therapy that again, or know where to start? I think it can be important to look at, okay, what are your current stressors? And then moving out? What are your social support systems? What is your family of origin story? Yeah. And when, when you're, when you're experiencing anxiety, it also can feel anxious, you can feel anxiety around what, you know, how do I under understand the root cause of everything. But also that's part of what you know, your therapist or, or anyone else that you're, you know, I'm thinking about? You said mentioned, confession, or even, you know, a church person, the counselor there should be trained to help you navigate and then start making connections. But even now, if you're experiencing anxiety, and you're like, What do I do, I can't go to therapy. I can't I don't have time for all these other things. Understanding, going back to some of our coping skill tools, right like that. You can Google anything around grounding exercises, deep breathing, going back to the basics of learning how to regulate your body physically is a great place to start. Yeah.
Scott Benner 59:51
It occurs to me that as we talk in in modern times about oh, there's so many more anxious people now I always think like there's Probably no more anxious people now than there was before. I just think maybe we talk about it more. Also, we've made a couple of things in life verboten that people were clearly using to like smoking, for example, right? Like, we have significantly quelled cigarette smoking. But how many people were managing their anxiety with cigarette smoking? Probably a lot. And now all of a sudden, a person who before wouldn't have seen themselves as anxious is probably like, No, I'm very anxious, or you mean, like, there's things like that, that, that as society changes, shines lights on other ideas. Now, maybe there are more people with anxiety that then there, there were in the past, I have no idea. I'm not looking at him. But this is as deep as I'm gonna look into it is to wonder out loud, it just does occur to me that we are in a sense, we are in a societal moment now, where people are also not as embarrassed to say something's not going well. When it's spoken about colloquially, you'll hear people say, I've said it before, like everybody wants a diagnosis. Like everybody wants to say they have a thing now all the sudden, like, I've never seen adults walking around and going, like, I think I'm this I think I'm that I'm like, oh my god, like, okay, like, like you so many feet, it feels like they want to identify their problem, somehow, like, right, like, I want to give a name to my problem. But I think it probably would be more valuable to give a voice to the what got you to the problem. And then just to say, Oh, I have this, see. And then that'd be the
Erika Forsyth, MFT, LMFT 1:01:26
right. You don't there's there's such their interest, interesting conversation around, you know, the DSM, the diagnosis manual. And even the ACE study, there's, there are critics of these things, because then it's saying, Okay, well, great. You have, you have five aces, and now you have now we can identify you as having PTSD. That's great. But let's we want to understand how can we help heal people and understand, not
Scott Benner 1:01:53
just paint them and then go, Okay, we'll go away. You have this now? Like, right, like, yeah, I want to get past this idea. Are there people walking around who have been through those aces? who legitimately don't have life struggles? Where is it impossible to have those things happen to you and not be impacted by them?
Erika Forsyth, MFT, LMFT 1:02:11
I don't know if I could, like, I wish I could give you like a study. But I mean, I think that, in general, the research has shown that yes, you certainly can be exposed to these aces and, and succeed, and you've demonstrated resilience, you've overcame that adversity. But then there's also the data that says, well, that also can really impact your your mental health, your physical health, your overall functioning. But again, going back to the question of like, Are there more people with anxiety? Or are we just having that conversation and diagnosing more is, is a complicated line that we've kind of talked about this a little bit in past episodes. I think that the beauty of it, though, is, is normalizing the experience that people are, I think there probably is more anxiety based on a lot of things like the internet and social media, and even just thinking about with diabetes, you know, when you were diagnosed, like I was 30 years ago, you could hide it. And you would not, you didn't have any beeps, or things on your body. And consequently, I didn't have any teachers telling me like, who's ringing who's beeping or kids, everyone, you know, you beep and all the kids look at you in the classroom, and you have that micro moment of like, Oh, I'm different, right? I didn't have any of that even
Scott Benner 1:03:23
your health, you can kick the can down the road, because it's not hurting you in the moment. So you don't even say it. Yeah,
Erika Forsyth, MFT, LMFT 1:03:29
that's interesting. And so now with, even with the, you know, the the, all this technology, their psychological implications of, of caregivers, looking at the numbers all day, my mom had no idea what my number was until she would download my CGM or look at my, you know, fake life.
Scott Benner 1:03:50
42
Erika Forsyth, MFT, LMFT 1:03:55
there are opportunities for anxiety to be triggered more so. And we're talking about it more. And we're understanding what it looks like more. Yeah,
Scott Benner 1:04:04
yeah, gotcha. Okay. Well, I appreciate this. As always, I'm fascinated by all this and like, and looking at the different pathways that you could end up where you are and, and I also am very cognizant of the idea that like, there are some people who are like, I don't end up somewhere I make choices to get places. And then there are people who are like, I don't have any of these problems. And maybe they don't like maybe some of them don't, but maybe some of them do, and just think they don't land in the end. If you're happy. Is that enough? Like, you know, at what point do you want to just live your life and not be working on your life? There's just a lot of interesting questions for people to ask themselves in here. And I think just by talking back and forth like this, you allow them to wonder what those questions are, you know, anyway, appreciate it very much.
Erika Forsyth, MFT, LMFT 1:04:51
Yes. Thank you.
Scott Benner 1:05:01
A huge thanks to Dexcom for supporting the podcast and for sponsoring this episode dexcom.com/juicebox Go get yourself a Dexcom g7 right now using my link. A huge thanks to us met for sponsoring this episode of The Juicebox Podcast. Don't forget us med.com/juice box this is where we get our diabetes supplies from you can as well use the link or call 888-721-1514 Use the link or call the number get your free benefits check so that you can start getting your diabetes supplies the way we do from us med. I want to thank the ever since CGM for sponsoring this episode of The Juicebox Podcast. Learn more about its implantable sensor, smart transmitter and terrific mobile application at ever sent cgm.com/juicebox Get the only implantable sensor for longterm where get ever since if you are a loved one was just diagnosed with type one diabetes, and you're looking for some fresh perspective. The bold beginning series from the Juicebox Podcast is a terrific place to start. That series is with myself and Jenny Smith. Jenny is a CDC es a registered dietician and a type one for over 35 years. And in the bowl beginning series Jenny and I are going to answer the questions that most people have after a type one diabetes diagnosis. This series begins at episode 698 In your podcast player, or you can go to juicebox podcast.com. And click on bold beginnings in the menu. I know that Facebook has a bad reputation. But please give the private Facebook group for the Juicebox Podcast. A healthy once over Juicebox Podcast type one diabetes. The group now has 47,000 members in it, it gets 150 new members a day. It is completely free. And at the very least you can watch other people talk about diabetes, and everybody is welcome type one type two gestational loved ones, everyone is welcome. Go up into the feature tab of the private Facebook group. And there you'll see lists upon lists of all of the management series that are available to you for free in the Juicebox Podcast, becoming a member of that group. I really think it will help you it will at least give you community you'll be able to kind of lurk around see what people are talking about. Pick up some tips and tricks. Maybe you can ask a question or offer some help Juicebox Podcast type one diabetes on Facebook. If you're not already subscribed or following in your favorite audio app, please take the time now to do that. It really helps the show and get those automatic downloads set up so you never miss an episode. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. The episode you just heard was professionally edited by wrong way recording. Wrong way recording.com
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