#458 Cutting on Cam
Caitlin is 11 years old and she has type 1 diabetes
Get ready for a delightful hour with Caitlin followed by a few minutes with her mom.
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or their favorite podcast app.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:11
Hello friends and welcome to Episode 458 pieces and isn't sure I'm going with it. Hello and welcome to Episode 458 of the Juicebox Podcast. Oh, I was right I just checked. That's exciting. Today's show is with Caitlin, and her story is about much more than her age would indicate possible.
Please remember, while you're listening that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, please always consult a physician before making any changes to your health care plan, or becoming bold with insulin. I'd like to take this time to thank you for sharing the show with others as it grows and grows march was the most downloaded month in the history of the show. That has a lot to do with you sharing it. And I thank you. I'd like to thank you also for leaving the great ratings and reviews where you listen for subscribing, your podcast app for checking out diabetes pro tip calm as often as you do. That website gets ton of traffic, and I really appreciate it.
Oh geez, I meant to say the show just hit 3 million total downloads. And I had a big celebration here where I'm sitting, none of you were invited. I did not record it. But trust me, it was a whiz bang knockdown affair. And if you were here, you would have a good time. Thanks so much for helping me reach 3 million downloads. Looking forward to many, many more. This show is sponsored today by the glucagon that my daughter carries. g evoke hypo Penn Find out more at G Vogue glucagon.com forward slash juicebox. You can support Type One Diabetes Research and the Juicebox Podcast. Here's how the T one D exchange is looking for type one adults and type one caregivers who are us residents to participate in a quick survey that can be completed in just a few minutes from your phone or computer. These questions are very simple, they only take a few minutes to answer. You'll be contacted annually to update your information and other than that there's nothing to do. This is 100% anonymous, completely HIPAA compliant, and you'll never have to go to a doctor or to a remote site. This is a simple way to add data to type one diabetes research and help everyone living with type one. Just go to T one D exchange using my link in the bio or by typing in T one d exchange.org. forward slash juicebox. Click on join our registry now. Answer the simple survey. And you're all done. T one D exchange research has led to increased insurance coverage for blood glucose meter strips, changes in the American Diabetes Association's guidelines for pediatric a one c goals and they helped bring Medicare coverage to CGM devices. Check them out T one d exchange.org. Ford slash juicebox.
Caitlin 3:16
I am Caitlin Volk, and I am almost 11 years old.
Scott Benner 3:20
When is your 11th birthday?
Caitlin 3:22
May 30 2000. Oh, yeah,
Scott Benner 3:25
yeah, this year, right? Yeah. It'll also be may 30. In 2021 and 2020 to keep going.
Caitlin 3:34
Like the year of sport and everything.
Scott Benner 3:36
You do you want to say it
Unknown Speaker 3:39
was fine. What
Scott Benner 3:39
year were you born? 2000 992 1009. Wow.
Caitlin 3:45
Like in kindergarten, I think I was the last kid to turn six in kindergarten.
Scott Benner 3:50
Do you get like that birthday party like right before the end of the year?
Caitlin 3:54
No, my birthday is always the like second to last day of like, not the second class day, but it's after the spirit of the school year.
Scott Benner 4:04
After that you're not even in school when you have your birthday.
Caitlin 4:07
Yeah, only last year when I was in fourth grade. It was it was the first time my um, my birthday has been during the school year and it was the second last day of school.
Scott Benner 4:17
Did you do anything for it? Bring like food in or have a party? No.
Caitlin 4:22
We just all my friends were saying Happy birthday. And a lot of my some of my friends brought me gifts. And that was nice of them. And then and then I didn't go to the last day of school because we went to Disney for my birthday.
Scott Benner 4:34
That sounds like a better present. What was the best gift one of your friends brought you?
Caitlin 4:40
Um, candy from that line gave me the biggest like a huge bag and I was just digging through it and there's so much
Scott Benner 4:50
well done. Now what gift Did you get from those kids and you don't have to say who it came from, but that you thought Oh, I don't want this. I don't know. You don't know where We'll get to you will find your will find your center here, Caitlin. All right. All right. Tell me how old you were when you were diagnosed with type one.
Unknown Speaker 5:07
Um, oh,
Caitlin 5:10
I believe I was eight years old.
Scott Benner 5:12
Okay. And you're 11 now. So like, Well, almost 11, as we know, on the 30th of may 2020. Right. So like three years you've had type one.
Unknown Speaker 5:23
Yes.
Scott Benner 5:24
I'm not sure you have any brothers and sisters.
Caitlin 5:27
I have one brother. Who's my younger brother. He's very.
Scott Benner 5:33
He's very wide. I'm sorry. annoying. Oh, I'm sure he thinks you're annoying too. By the way. Did you know that? Yes. Are you annoying?
Unknown Speaker 5:41
A little bit?
Scott Benner 5:42
What does he do that bothers you?
Unknown Speaker 5:44
Um,
Caitlin 5:45
he's always like, every single time he does something he thinks is so cool. He goes Caitlyn, Caitlyn. Caitlyn. Caitlyn. Caitlyn. like trying to get my attention. I'm like, I'm in the middle of doing something. Like, tell me when I'm not doing something.
Scott Benner 5:58
Do you know why he does that?
Unknown Speaker 6:00
He just wants to show me what he did. How come? Why does,
Scott Benner 6:03
but why does he want to show you? I have no clue. You want me to tell you why he loves you. And he looks up to you. He thinks you're amazing. True. Like, it's true that you're amazing.
Unknown Speaker 6:15
I don't know about that. I
Scott Benner 6:16
just agreed pretty quickly. You were like, it is true that I'm amazing. No, I that's very likely What's going on? Is he he looks up to you. And you're his big sister. And he's probably really excited to show you something that he figured out.
Caitlin 6:29
Some things sometimes they don't understand him because he likes Star Wars and Legos. And he's like, so this the TIE fighter and this is the x wing fighter. And I'm like, sometimes he tells me things I don't understand. Like, I don't know what it is. Yeah, like they'll say like, this is a Baba Baba, like a character from Star Wars. I have no clue who this is. And I'm like, so wait, what? Who is this?
Scott Benner 6:51
I'm gonna tell you something. Now. I think it's gonna really help you. Okay. So I know this is weird, because you're 11 and I told your mom, I was gonna say anything weird to you. But we're five minutes and I'm gonna say something weird to you? Do you feel like boys? Do you think boys are your jam? Like one day when you're older? Do you think you'll date a boy? Or do you think you're thinking more about a girl? Or do you not know yet?
Unknown Speaker 7:12
Oh, no,
Unknown Speaker 7:13
you're not sure I don't want.
Caitlin 7:15
I don't want to do anything with relationships at
Scott Benner 7:17
all. Yeah, it's good. It's a good place weird. Of course it is. But let me say something to you if you should, at some point, as an older person, like, you know, when you're like 28, or something like that, meet a boy and have relationship with him. This feeling you're having right now. If not understanding what your brother is talking about. That's going to happen to you. Because we don't really change that much. Boys. Just we just get bigger and we have hair on our face. That's really the only and then he's still like there's still going to be like a 30 year old guy in your apartment talking about Star Wars just so you know. It's not gonna get any better than this. This is this is the end of it right here. So your brother's is preparing you really well for being in a relationship later. Trust me. He's gonna bother you and say stupid stuff to you that you don't care about. And you're gonna want him to be around because you like him, but you're not gonna really the rest of it. You just need to like last night for an hour before we went to bed. I tortured my wife while we were watching television. And why did I do it? I have no idea just makes this makes me happy to like pause pause the show and say oh my god Kelly. Did you see what just happened there? That's amazing. This great show. And she just stares the TV thinking in her head. Why did I marry this guy? Just want to watch the show. That's all I want
Caitlin 8:36
to do. I do that sometimes my brother annoy him see
Scott Benner 8:40
things impossible. He's telling you about Star Wars not because he likes you but because he's trying to annoy you. Yeah. I bet you it's not. I bet you
Caitlin 8:48
this morning this morning. He was annoying me a little bit. He was um so we got so since since the the virus going around we had to get computers like laptops for for us so we can do schoolwork.
Scott Benner 9:05
So don't hold that story for a second. Your parents bought you a laptop because of the Coronavirus.
Caitlin 9:11
Well, because the only computer so my dad has a computer that has cords and he can't move it. And then my mom has one which is the one I'm using. It's it doesn't have cords but she takes it around with her everywhere and she's going to be going to work throughout like all of this and I'm going to be with my grandparents and she takes the computer with her
Scott Benner 9:31
laptop. Yeah, Caitlin, this is Coronavirus is the best thing that ever happened to you is that
Caitlin 9:37
Yeah, but my mom but my parents they're like this is only for schoolwork related things only.
Scott Benner 9:42
Oh no, it's not Caitlin. You can do all kinds of stuff with it.
Unknown Speaker 9:47
So
Scott Benner 9:50
what do you think? What do you think you're going to do first when you like sneak around and like like you're going to shop for clothes or what would you love to do if you had full access to that computer?
Caitlin 9:59
Probably just play games. Yeah, play games that I play at school because there's a lot of games that are education that actually are nice and fun.
Scott Benner 10:08
Yeah, I would definitely I would say to your mom, Listen, I've been doing a great job taking care of this computer. And there's this educational game. I want to play with that be okay. She'll say yes to that. And that, yes,
Caitlin 10:19
we just heard this morning because we asked her this morning if we couldn't play something on there. I said, Sure. I told her all about it was like it's educational. It's math. It's fun, like something We play at school.
Scott Benner 10:34
Yes, this is this is how it starts Caitlin right here. So you got what did your brother get for Coronavirus? The same thing you got a computer to? Yes.
Caitlin 10:43
And I know he's gonna smash it because the last computer my mom had, besides the one I'm using, it was this big red one that she had for work. He he so my mom downloaded like Minecraft and Roblox on there for him because he doesn't have a lot of things that he likes to play with. Like, he has toys or whatever. But some of them, he's just not really into anymore. Like still keeps them. And so he um, he was playing I don't know what it was it was Roblox or Minecraft on it. And he, um, and I guess he got so mad at it cuz he every time he plays a game and he like dies or whatever, but it responds him he dies. And then he Oh, he gets so aggravated. And I'm like Cameron, if you're aggravated about it, put it down, like stop playing with it and put it down. And he goes, but I still want to play it and don't get aggravated about it just the game.
Unknown Speaker 11:36
You're saying?
Caitlin 11:37
Yes.
Scott Benner 11:39
He's ever bumped his head? Do you think he has any kind of a head injury or anything like that? Have your parents ever indicated to you that they didn't think he was you know, maybe as smart as you are? or anything like that? They were talking behind his back like that?
Caitlin 11:52
I don't get into their conversations ever.
Scott Benner 11:54
Where do you live? What part of the country? I live from Florida, Florida. And you don't get into your parents conversations?
Unknown Speaker 12:01
Sometimes, but not all the time.
Scott Benner 12:02
My kids seem to constantly be in my conversations.
Caitlin 12:06
I sometimes get into their conversations. I feel
Scott Benner 12:08
like we made a mistake when we were parenting when they were younger. And my I want to do you know, not allow them to have any, you know, opinion, but my wife was like, we have to let them think for themselves. It's like, Oh, this is gonna lead to problems. And then sure enough it did. They have their own thoughts. And they always want to interject them into the conversations. Do you have your own thoughts about things? Sometimes will tell me that when I was Oh, you got a story. Caitlin? Yeah, her box, go to your store.
Caitlin 12:38
My friends would always call me. Miss chatty Cathy, when I was in kindergarten, because I would chat so much.
Scott Benner 12:43
Maybe you can have a podcast one day?
Unknown Speaker 12:46
No, probably not.
Scott Benner 12:47
Why not? You haven't had or you're halfway there. True. Now you need a microphone. Couple other things I can get you set up. Can you imagine if you had a podcast? We just made fun of Cameron the whole time.
Caitlin 13:00
Do you think that would be a blast? I would have so much fun.
Scott Benner 13:06
All the stories you'd call it cutting on Cameron. Right?
Caitlin 13:11
I go to my mom after this and be like, Mom, I want to start a podcast right? Talk about
Scott Benner 13:15
camera and torture my brother, for everyone to hear. I bet you that'd be huge. I listen, if you end up doing that, that's gonna be on the Juicebox Podcast Broadcasting Network. I'm gonna fold that into the be one of our offerings. Okay. Okay, you could be my first other podcast. Can you commit to for a month? I don't know. Jeez, Caitlin. You're letting me down pretty quick here on this. Okay. Well, I take my offer back. So tell me something. What? What's your involvement with your diabetes? Like? Do you take care of it? Does your mom do you guys co do what you do with your dad cameras not in charge of it? I imagine.
Caitlin 13:48
Yes. He's not in charge of it at all. So sometimes he Um, so it's a mix between my parents and myself. So with the Dexcom, I'm linked, so it's my phone, linked up to it. Then my mom, my dad and then my grandma who's one of my grandmas who's a nurse practitioner, who studies some she she studies diabetes and other things. And so we're all linked up to that. So during the day while I'm at school, my mom, sometimes she'll text me and be like, hey, do a Temp Basal increase or Hey, do you a correction for this? Or hey, like either glucose tab, and I'll do it. And so during the they find here at my house, I'll I'll do some stuff and then my parents will do it. But at night, it's my parents because I never hear the alarms that night. It's tough to wake up in the middle of the
Scott Benner 14:41
night. It is so tell me this like if you were going to put your blood sugar right now.
Unknown Speaker 14:48
Oh, good question.
Scott Benner 14:49
That's not a good question. It's a pretty
Caitlin 14:51
taxing. I was texting my friends earlier. Like Wish me luck,
Scott Benner 14:55
because you're gonna be on the podcast. Did they wish you luck? Are they jealous?
Caitlin 14:59
Oh, They're like good luck. I'm not 126 Have you eaten today? Oh, yes, I had breakfast tonight. Before he told
Unknown Speaker 15:09
me what he ate.
Caitlin 15:10
I had a toasted croissant with egg and cheese,
Scott Benner 15:14
toasted croissant, egg and cheese and your 126 How long did you eat?
Caitlin 15:20
I around ate something.
Scott Benner 15:23
So it's been, it's been almost three hours. You're doing great. Yeah, you expect this to go up or come down.
Caitlin 15:30
My mom expected it to go straight up. So she knows a little bit more than I think she was intending to. For some reason today. She told me before I started this, she goes, we probably should have dosed more for this. And I'm like, What do you mean? We should have dose more for that? So I'm perfectly fine. Well,
Scott Benner 15:47
maybe you say to her lady, listen, I'm counting on you. And let's be more decisive. Right. But But okay, so you're perfectly fine. How high Did you get after you wait, was there a peak? Or did you stay kind of level?
Caitlin 15:57
Oh, I did kind of make a peak.
Scott Benner 16:01
You know where I went to?
Caitlin 16:04
I was, I'm okay, I'm going to eight. So I was at like, between the 80s and the 90s. And then it started to shoot up to the highest I got was 140. Some was like 144. And then it started to come down a bit.
Scott Benner 16:20
It just sounds like perhaps your Pre-Bolus was not quite long enough. Is that possible?
Caitlin 16:26
it? It does that a lot? Because when we first started it my mom listens to the podcast all the time. That's good.
Scott Benner 16:31
She should By the way, everyone should. And if and if anyone's listening right now, should they not subscribe to right in their apps? Yes. Yeah, right. Okay. I'm sorry, Caitlin.
Caitlin 16:42
My mom was listening to one of the one of your podcasts episodes. I don't remember which one it was. But the one I remember talking about Pre-Bolus thing was with Tommy, Tommy,
Scott Benner 16:51
I think it was actually called Tommy. But yeah, good.
Caitlin 16:55
And so she so when we, when my mom first heard of it, she was like, No wonder why she's picking up at school like he's going straight up. I should Pre-Bolus. So when I'd wake up, and my parents, I would tell him what I was going to eat in the morning, possibly cereal or like toast, I would, they would dose for it. And then I would like take a shower, get dressed, do whatever I need to do in the morning. And then I would come out and I'd be perfectly fine. Till them later on it. We stopped doing that. Because as I was getting a little older, I was waking up early, and like taking showers getting dressed and doing all that and then I would go out towards round seven go out and tell them what I was going to eat.
Scott Benner 17:36
So So you were Pre-Bolus Singh having good success with it. But then when you got to a certain age, you decided you wanted to be clean before you went to school. And that messed up your Pre-Bolus. What does that tell you about showering?
Unknown Speaker 17:50
Hello, I have no clue.
Scott Benner 17:54
Caitlin. So Alright, so now you're you're you're prepping in the morning. It's taking a little more time. And that time was when you use the Pre-Bolus. So have you fixed it? Because I'm assuming you figured out you need to Pre-Bolus right. Yeah, yeah. So what have you done to adjust your daytime, your morning ritual so that it works better?
Unknown Speaker 18:14
Yeah. I'm
Caitlin 18:18
just stayed the same. Until then. Sometimes in the morning. Like on weekends, I will wake up at a specific time. Like I it switches around. So sometimes if I wake up at like, seven in the morning, we'll Pre-Bolus and then I'll do something and then I'll eat sometimes if I wake up later. All right. When I wake up I want to straight eat.
Scott Benner 18:40
Yeah, well, what your mom, so. So five minutes before you and I started talking. Arden came wandering in here. And she's on our way downstairs because she's Of course going to school from my kitchen now. The Corona university we have downstairs in the area, and she's like, I'm hungry. And I said, Yeah, you look hungry. And she's like, she said, Can you make me something? I said that I can't. I'm about to record a podcast. And she's like, Alright, well, I'm just gonna have cereal then. I was like, Yeah, alright, so I said, you know, Bolus and then wait at least 15 minutes or until you have an arrow that's going down. And she was 120 when I told her that. Yeah. And so she did Bolus I'm looking at it here. I like to have Arden's graph up while I'm doing the podcast in case that comes up. And she's 109 right now, I don't know if she started out or not. But she had to Pre-Bolus and she looked at me when I was like you have to Pre-Bolus this is gonna be a mess. And she made a little face. Like, you could probably imagine the face was a little scrunched up irritated face because she just wanted to eat. And I said, and this is a quote from me, Caitlin, I said she made the face and I said, Shut up, right like that. And she didn't actually say anything. So then our little face tightened up a little more, and I'm like, get out of here and just Pre-Bolus. And, and everything's going right. And meanwhile, she's fine. You don't I mean, like, she doesn't want to wait, but it's not killing her. It's not changing. It's not making her upset. You need to wait. You can Yeah, you can do it.
Caitlin 20:16
With me sometimes, like, if I'm somewhere I'll get really hungry. Like, if we go to Disney, I'll get super hungry, because I've been walking or running or doing whatever that whole day, I'll get so hungry. And then my parents are like, okay, we're gonna Pre-Bolus and you're gonna wait. And I get so aggravated, because I'm like, one, I'm hungry. And to sometimes as I'm waiting for my blood sugar to go down, or for me to be ready to eat my like, my friends, because I like to go with my friends. I've seen them all eat, and I'm like, I just want to steal something and eat is
Scott Benner 20:50
there's only one little thing you have to change to make this all work. What is it, you know? Pre-Bolus before you get there, just think ahead a little bit more. That's all and even if it's just a little bit of insulin, because I hear what you're saying. Right? Like, you don't always know what you're gonna eat. Right? But let's say this, when you eat, do you ever eat and only need like a half unit of insulin? Don't you mostly need like a couple of units when you're eating? Yeah, right. So what if you just were like, Oh, let me just slip in a little bit of insulin here. So I get some of it going. And then we can go get the food, and then put in the rest of the insulin. And then I can start eating with my friends because I still have a little bit of a Pre-Bolus Yeah, it's a good idea. You know what I should do? I should probably record these ideas and put them on the internet so other people can hear them. Don't you think though?
Unknown Speaker 21:42
Yeah. Hey,
Scott Benner 21:43
what's it like living close to Disney? Is it just like a regular stop for you guys?
Caitlin 21:49
Um, we go, we go. Not really a lot. What we do go a lot a year, but it's always like, like months in between? Yeah.
Scott Benner 21:59
Well, you're not there every weekend. Yeah, yeah. But you know, for instance, most people listening go once every 10 years. You get to go cleanse you because it's near your house.
Unknown Speaker 22:07
Yeah.
Scott Benner 22:08
What's your favorite thing there to do?
Caitlin 22:10
My favorite thing to do is just go to the rides and meet the characters. That's the one thing I want to do every single time. What's the best ride?
Scott Benner 22:20
Well, let's go which one's the best and we'll work our way down.
Unknown Speaker 22:22
So many.
Scott Benner 22:26
Shut your eyes. Shut your eyes. We're at Disney. You're only allowed to go on one ride. Okay, what are you going on? There you go. See you. Later that falls, right?
Caitlin 22:38
Yes. I only went on it once in the ride on the wait line because we had a fast pass for it. I was so scared. I was like, Dad, dad. I don't want to go on this. Mom. Take me off. No. I even said I thought I was gonna puke. Because
Scott Benner 22:57
Do you think that part of what makes the ride great is the time you have to spend wondering about what's going to happen on the ride. Yes, yes. Right.
Caitlin 23:05
Because I because for some reason to me, when I go on a new ride, I think it's more scarier than it actually is. Tap here I thought it was gonna drop you from like the very top and you drop straight down to the floor. Right? So but really, we go on the we go on the smoother part of it, which I had no clue. We just went up and down, up and down halfway to the very top, like almost halfway to the very top and we just chopped down.
Scott Benner 23:31
This guy to scream. No. Did your blood sugar go up afterwards? Yes. You know why? nervousness? adrenaline? Yep. You know what adrenaline is?
Caitlin 23:43
Yeah, it's when you're like, freaking out nervous. Like, no, no, it's pumping.
Scott Benner 23:48
It could be anything. It could be like if you're excited to. Let's see if you can be excited, like in a sport. Do you play any sports?
Caitlin 23:58
Yeah, I don't know if dance is technically a sport. But yeah,
Scott Benner 24:01
listen, people are gonna tell you it is and if I don't say it is people are gonna get mad at me. But you know what I mean? It might not be I'm just kidding. Adrenaline is a hormone right? So it just big stress. Blood circuit eating eating increases like your rate of blood circulation breathing. The way carbohydrates are metabolized. It's prepping your body right to be like to like take off. Yeah, right like so it gets you all jacked up and then there's then there's nothing to do. So
Caitlin 24:32
my mom on Facebook, I was getting my ears pierced. And my mom was looking through her Facebook and I was there with her because she was showing me something. And I saw her posts and it was me have a picture of me to get route ready to get my ears pierced. And so it was me before and then she showed and then she showed the my blood sugar before perfectly fine. And then she goes and then it's the it's like the before and the after. It's my blood sugar, just shooting straight up. She goes, she was lying about herself being nervous because it's going straight up.
Scott Benner 25:06
Were you calm on the outside?
Caitlin 25:09
I said I was I was a little nervous but mostly calm.
Scott Benner 25:12
I was just like, in your face. It's not great. You know?
Caitlin 25:17
That's not my dad said it would be. It wouldn't be that bad. It
Scott Benner 25:21
hurt a little he lied to you so that you'd be comfortable. Yeah, you're starting to figure that out about parents.
Unknown Speaker 25:28
Gonna be like, it's gonna be fine.
Scott Benner 25:29
They told you like this Coronavirus is no big deal. Just you getting a laptop, right? Yeah, yeah. Do you think? Do you think that's true?
Unknown Speaker 25:37
sorta.
Scott Benner 25:38
I sort of think it's true. I sort of, I sort of, I'm like, I wonder what's gonna happen. Are
Caitlin 25:45
you very good. I'm very indecisive about things. You're 11
Scott Benner 25:50
Yeah, your brains like mush. It's not even a full brain yet. Yeah, you're doing really well, by the way for being 11 This is a good conversation. Yay. Yeah. Tell you. You want to tell me something? Yeah. All right. I was gonna say some but you go first.
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I just need to remind you to go to T one d exchange.org. forward slash juicebox. And check out all of the other sponsors of the podcast. They're all right there in the show notes of your podcast player links to find out if you're eligible for a free 30 day trial of the Omni pod dash or in there there's a link to learn more and get started with the Dexcom g six continuous glucose monitor. You can find out about touched by type one.org g Volk hypo pen, it's all there right there in the show notes. There's also links at Juicebox Podcast comm to check them all out. And don't forget while you're there, that Contour Next One blood glucose meter good test and with that Contour Next One, you're gonna love it. All the links again, aren't Juicebox Podcast comm they're in the show notes of your podcast player or you can just type them into your browser. I'm not gonna make you listen to them here. But just remember when you hear him on another episode, you know, I'd like to support the podcast I will get a meter I mean don't get it if you don't want to but check it out at least the meters freakin terrific. And the other stuff my god are you kidding me a free 30 day trial the Omni pod dash Can you imagine if you're eligible for that? Check it out. And the Dexcom g sex you just know to get that stop it. Elizabeth was just on the other day from touched by type one. You heard her she's delightful touch by type one.org. All right, let's find out what Caitlyn wanted to ask me. Thanks so much for listening, guys. I really do appreciate it joking aside, your support of the show is evident. And I really appreciate it.
Caitlin 28:43
You remember when you did the for dancing for diabetes that caught that? Call? Not conference that that talk. Orlando.
Unknown Speaker 28:52
Were you there?
Caitlin 28:55
Oh, you you remember when you're asking about what's your favorite food? And that was the first in the first girl you talk to? That was me. Wow.
Scott Benner 29:03
How long was that last year? The year before when? I was good last year. You're lucky. Yeah.
Caitlin 29:10
The only reason why we went there because she was like, I go mom. So why is the reason we're going to Orlando and she goes because Scott Benner is gonna be there and I'm super excited. And I'm like, Oh, she's so sweet. Yeah, it's I had never heard of you. At the time. Well, I'm
Scott Benner 29:26
48 year old guy doing a podcast about Type One Diabetes near 11. So that makes sense. Don't you?
Caitlin 29:32
My mom showed me your podcasts and I was like, I was like was like
Unknown Speaker 29:36
my mind is blown. Do you listen? Yes.
Scott Benner 29:39
Hey, can you do me? Can I pick showers while you take showers you listen to podcast real quick before we go and he do me a favor. Can you say everyone should check out touched by type one.org
Caitlin 29:52
everybody should. Everybody should check out touched by pipe one.org.
Scott Benner 29:57
That's great because Scott's gonna be speaking there in May. Again. Yeah, now I don't have to put the ad in this episode. Thank you so much. Everybody that was an ad Just so you know, I'm not paying Caitlin, but I am making money for saying that. So
Unknown Speaker 30:10
I subscribed so I'm good.
Scott Benner 30:12
Thank you. Sometimes there's episodes that are not good for kids. Does your mom make you skip those? Yeah, to like, you know, once or bad or not. Oh, she come tell you like, Hey, don't listen to this week's Oh, sometimes. Oh, one of them's coming up this week, by the way, just so you know.
Caitlin 30:31
So the only ones I listened to her the ones with kids? Oh, I know aren't gonna be that bad.
Scott Benner 30:37
Yeah, I don't think well, I'm different. I guess I talk to my kids differently than other people do. Maybe. But I don't think any of them are bad. Some of them are just maybe like topics that are. You know, you're not ready for yet. But you will be one day.
Caitlin 30:51
One of one of them that my mom told me not to do is the um, the after dark or whatever.
Scott Benner 30:57
Yeah. You told me don't listen to those ones. Did you? Did you like look at them and think maybe I'm gonna listen Anyway, I hope you didn't.
Caitlin 31:04
I looked at them. And I was like, Okay, I read the little bio. And I was like, No. Okay.
Scott Benner 31:09
So what was so there was one about smoking weed. So that one and one about, like, nope, yeah. And there was drinking and there was one about a person to had like a tough life.
Unknown Speaker 31:21
I was like, no, not during those. Yeah.
Scott Benner 31:23
The next one's gonna be about sex. Don't listen to that one either. Oh,
Unknown Speaker 31:25
yeah. Yeah. Okay, good.
Caitlin 31:28
So that's my favorite ones are the one of them is loop de loop. That one about melody. You liked melody? Yeah, I like that one. That was fun.
Scott Benner 31:37
Yeah. I thought that was a weird conversation. But it was. When it was over. I thought, I don't even know what we talked about. And then I listened back to it and edited it. And I still didn't even know we talked it out. But I was like, it's good. And people like it. So.
Caitlin 31:50
And also Megan makes peace number 294. That one's fun.
Scott Benner 31:54
Yeah. Do you like it? What do you like better when? Like, do you like when people say something that you're like, wow, I never thought of that before. Do you like hearing about managing diabetes? What's your favorite part?
Unknown Speaker 32:06
All of them.
Unknown Speaker 32:07
Thank you.
Scott Benner 32:10
Do you listen to any other diabetes podcasts?
Caitlin 32:14
Well, that's the only one that I know of.
Scott Benner 32:16
Right? That I know when there is really?
Caitlin 32:18
Yeah, yeah, there's there's other ones but they're like people. I don't know.
Scott Benner 32:22
Yeah. Those aren't real podcast. Those are something. This is the one you've got the right one. This is the only podcast that serves children episodes about smoking weed. Yeah, it's it's not really what it was about. By the way. Do you want me to tell you what it was about? Yeah. Okay, I won't one day when you're ready. You know, you can go check them out. Do you know I've never done any drugs in my life?
Unknown Speaker 32:50
No, I never knew I
Scott Benner 32:51
never once asked me if I drink.
Unknown Speaker 32:55
I'd say yes. I don't.
Scott Benner 32:57
Not at all. But not even a little bit. Yeah, like people just like, oh, I'll have a beer. I don't even do that. Yeah, not even a little. Nobody in my house drinks. Actually.
Unknown Speaker 33:09
My mom and
Scott Benner 33:11
ycm Creek. Are your parents alcohol? Should we need help?
Unknown Speaker 33:14
there? No. They don't do it a lot. But sometimes
Scott Benner 33:18
fancy places they will fancy places. Your parents like to get a little like, a little liquor. Like of it. Yeah, just get going a little bit. Plus, you're in Florida, there must be a law about drinking that right? I have no. Do any of your friends drink? No. Good. That's good. And if they did, hanging out with them, right. But if they if they started, you'd have to stop hanging out with them. Right?
Caitlin 33:42
Probably. I'd be like I'm not hanging out with that could
Scott Benner 33:45
be a difficult decision, but that'd be a good decision for you. So what do we need to know here? What kind of gear do you have for your diabetes? Are you shooting insulin with a pen? Do you have an air pump?
Caitlin 33:57
I have a Omni pod. Nice. I started with the syringe then then pen and then the Omni pod.
Scott Benner 34:06
What's been your favorite way so far? Omni pod? How come?
Caitlin 34:11
Because it's so part of the reason is because at school I have we have nurses. And so our lunch every single time It starts at a different time, like different grades sorts of different times. But what's hard is we always go outside first. So I'll have to come outside and then run to the nurse's office and and take insulin and with the Omnipod I don't have to go to the nurse I can just follow the line. I can just follow my line to follow the line to go into to go into the lunchroom and I just sit down with my lunchbox. My all my dad he writes the carbs on E right how many carbs it is on the bags of of them. Or if it's like a pack of goldfish it will say the carbs, add it all up and put it on Omnipod Wow.
Scott Benner 35:00
That's really great. And so that keeps you from having to go to the nurse's office and from having to inject while you're at school and things like that.
Caitlin 35:06
Yeah. And then it wastes a lot of my time for lunch because I'll get there and they're like, because sometimes I'll get there and my class has already started like all my all my whole classes already. They're starting to eat and I'm still like in the nurse's office still shooting insulin at me.
Scott Benner 35:22
Yeah, that's x plus you get the Pre-Bolus a little on the way to your lunch. That helps Hey, real quick Caitlin, if you could just say Find out more at my on the pod comm slash juice box that'd be great. You don't have to wait what I'm just joking. Do you want to do it it's my on the pod but even deep in your voice little bit go in. To find out more about the Omni pod and to get a free no obligation demo of the Omni pod go to my like that good.
Unknown Speaker 35:45
I can't remember.
Scott Benner 35:47
Nevermind. Hold on a second. I have to hear my voice. Do you think I got the Coronavirus? No, I don't think so be that I've been locked in this house for like a week and a half. Let somebody Yeah. What have you been
Caitlin 36:03
like to just? We went to Disney for a full week. So we were out of the house.
Scott Benner 36:06
Wait a minute. let's admit to that people are gonna get mad at you so far. People have liked you.
Caitlin 36:11
We record we were quarantined in the hotel room for five days. Because we were there. You were there. Because we were there for a whole week Friday to Friday of last week. And so the parks are only open so for us. The parks were only open for those two days because they closed Sunday afternoon. Okay. We had went there. So Friday, we went to Disney Springs. Saturday we went to where did we go? We went to animal kingdom and then we went to Hollywood and then we left. Then we went back after Hollywood. We went to Disney Springs because I guess they were closing that Monday. So we just went there, bought everything we needed to do and then for so we did part of Monday went back then that part of Monday, Tuesday, Wednesday, Thursday, Friday. We just stayed in the hotel room and left Friday morning. So you
Scott Benner 36:59
know it's interesting. So you live Friday morning, by the way anybody who gets Coronavirus in Florida it's Caitlin's fault. But wait, see you Friday morning on the 20th. Probably. Um,
Caitlin 37:11
it wasn't morning. It was after lunch.
Scott Benner 37:14
Was it last Friday, like just past weekend or the week before? The week before? It's the 13th so you know, you actually won't know. So you've been in your house since then.
Caitlin 37:25
Oh, yes. Since we came back. We've been stuck in the house for a little bit.
Scott Benner 37:28
Yeah, more days. You have to wait to see if you have Coronavirus. Did you know that takes two weeks to know if you have it or not? Oh, no. One more than what you're doing great. You probably don't.
Caitlin 37:38
Have you had some of us I've been coughing and everything but it's not too severe. Just like a little younger adult.
Scott Benner 37:44
Do you think I can tell you? The first time I saw yo yo Ma and concert was at Carnegie Hall. I've just had a lot of words you might not know. Yo Yo, yo yo ma is a cellist. He plays the cello. And Carnegie Hall is a very famous space. In New York City. There's that cough that's your Corona right there.
Caitlin 38:04
No, Mike. I was drinking water whenever I'm
Scott Benner 38:07
Coronavirus. Now. We're in Carnegie Hall watching yo yo ma perform. Okay. And there's a guy in the row in front of me a little to the right. And every time he started to play the cello, this guy would go. And then when he'd stopped playing the cello, he never that never happened. So I think that sometimes people can feel so much pressure to be quiet, or to not cough that they do it. Like kind of subconsciously.
Unknown Speaker 38:41
That's weird.
Scott Benner 38:42
Don't you think? That could happen? Because why? Why was he able to be quiet when he wasn't playing the cello? Yeah, right. He wasn't a jerk. He wasn't doing it on purpose. It was just as soon as he knew he had to be quiet. He couldn't help himself.
Caitlin 38:57
I bet you he was uh, I bet you that dude was probably a really good person, like a good like a person and really into music. Well,
Scott Benner 39:05
I don't think a lot of people end up at Carnegie Hall watching a cello if they're really into it. That's not something you go to by mistake. Yeah. I
Caitlin 39:11
mean, it was my mom decided she liked the cello. So we'll go there.
Scott Benner 39:16
Yeah, yeah, I don't think so. I saw. I also saw um, yo, yo, ma. Wow, it's been a long time already. No, I was just looking up. My tickets up here. Oh, isn't that weird? Like, I feel like I saw him last year around Christmas. But it was two years ago at Christmas play. Yeah, I bought a poster and had it signed and it's hanging up right here while I'm working. So I was there on November 29 2018. He played all six sweets of the Bach cello. It's beautiful. Do you want to hear? Sure. I don't think I'm allowed to play music on this. I think I'll get in trouble. Don't think I'm allowed to do that. By
Unknown Speaker 40:03
playing I can't hear it. I
Scott Benner 40:04
wonder if you can hear it. I don't even know if you can. I don't know how that works. I haven't turned it on yet. Caitlin.
Unknown Speaker 40:10
Oh, cool. I was gonna say if it's turned on, I can't hear you calm down for a second.
Scott Benner 40:14
You're very excitable. Yes. I'm gonna play it for you. I might have to mute it out on the like for people people listening might not be able to hear it, but you will be able to hold on a second. So I think you're going to hate this, but I'm I'm interested to find out.
Unknown Speaker 40:35
Is it going to be loud?
Scott Benner 40:36
I don't know. Okay, I've never done this before. Hold on. Wait. Can you hear it? No.
Unknown Speaker 40:46
I only hear you.
Scott Benner 40:48
It's coming through my headphones. Hold on tight. Could you hear it? You couldn't hear it? Dammit. All right. Anyway, my favorite thing,
Caitlin 41:15
the things we can't do on a podcast.
Scott Benner 41:16
Well, apparently I could do it. But I'd have to do a whole thing. Because I really don't know how I would do it if I've never tried that before. Anyway,
Unknown Speaker 41:26
something.
Scott Benner 41:26
The unaccompanied cello is my favorite instrument.
Caitlin 41:30
I kind of know what that is.
Scott Benner 41:33
Don't just that. It's like a giant violin. It's like a giant violin. Okay. But if you told me, Scott, you are going to be stuck on a desert island for the rest of your life. And you can only take one piece of music with you. I would take the cello makes me happy. And sometimes I start like getting a little teary eyed for no reason because some of the notes hit me like really deep in my heart. It's lovely. Maybe one day you will you will find it most likely not.
Caitlin 42:02
Yeah, I'm not very I'm not really a music person.
Scott Benner 42:06
Well, I'm you're gonna be dead anyway for the Coronavirus. But you know, so you have a very good sense of humor for an 11 year old by the way. So are you nervous about this stuff at all?
Unknown Speaker 42:17
diabetes, for diabetes, I
Scott Benner 42:19
was gonna say Corona and but didn't tell me what you're thinking about around the whole thing.
Caitlin 42:24
So I heard him I'm a little nervous about the Coronavirus because I don't know if I misheard this, but I heard it while we were at Disney. We were eating dinner and the newscast was on. And it said people with diabetes have a really good chance of dying if they get the Coronavirus. And I'm like, What? I walk out of the room. I go, mom, I think they just said this on the news. But I think they said if somebody would if somebody with diabetes gets the Coronavirus, they have a chance of dying and I'm like, I'm so nervous. Almost like nope, nope, not never going out. It's hotel room ever. But I did.
Scott Benner 42:57
Well, so here's what you would you know what you'll find out if you actually listened to the episode that I've done a couple episodes about Corona. And yes, people with diabetes are at an increased risk. But that takes into account the people who are maybe not in as healthy of a place. So I think that for someone like you who is young and otherwise healthy and whose blood sugar's don't go over 126 when they eat a croissant egg, and I think you're going to be okay, that doesn't mean you can't get it still. I don't think it means that you're more likely to get it because you have diabetes. I think it means that if you get it and you have diabetes, and your health is not good, it might be more difficult to fight off. But the truth is if you have diabetes and your health is not good in general, other illnesses are also harder to fight off. I also think that when the media says diabetes, they often mean type two diabetes.
Unknown Speaker 43:55
Yeah,
Scott Benner 43:56
that's what I was thinking never get a full explanation from them about Yeah,
Caitlin 43:59
just like diabetes Coronavirus risk of dying each one
Scott Benner 44:06
well you know what you shouldn't do probably you shouldn't go to like Tower of Terror during so where you guys just trying to sneak it in under the under the thing they're trying to get a little fun in before you're gonna get locked up. Yeah, yeah.
Caitlin 44:19
Because we were planning before before the Coronavirus was even like in the United States, we had already planned it. We were like, Oh, it's not gonna get in the United States at all. We were planning that whole week going to Disney. Like we had it all planned out like magic kingdom would be like Tuesday, and looking will be like Thursday. We had it all planned out until they until we got the announcement saying the night before we left. That before we left we got it. We got a like a notification from Disney saying that they were closing the parks Sunday off sudden like at 12pm 12am they were closing all the parks.
Unknown Speaker 44:57
You know my heart was broken
Scott Benner 44:59
or something Crazy. I just realized there's a person who listens to this podcast, who was also at touched by type one last year in the same room you were in where you asked your question. Who dances at? Animal Kingdom? She's a performer, Animal Kingdom. And that crazy?
Caitlin 45:19
I don't recognize very many people at Disney that I know.
Scott Benner 45:22
Yeah, you wouldn't recognize her. But that's what she that's her job right now. That's what she does. Oh, that's cool. Yeah, I thought so. So he just realized that he said, Okay, so what are your goals here for diabetes? When life goes back to normal? And you know, everything or even now? Do you want to be in charge of your insulin? Like, what is your desire around that? Do you wish your mom wasn't involved? Do you like your mom being involved? How do you like it? Like,
Caitlin 45:48
I like my parents being involved? Because a lot of the times, like at night, perhaps I can't hear you alarms. And I would never know. Like, if my parents weren't involved in this, I would never know that my alarms weren't going off.
Scott Benner 46:02
Do you get but what about during the day when you're awake? Would you like this start being in charge? Or? No?
Caitlin 46:09
I guess sometimes they'll be like, give yourself a correction. But then the, but then sometimes, they'll be like, give yourself a correction. I put my blood sugar and on the Omnipod. And there and it says not gonna give me anything. So I go like, What? How much do you want me to give me? How much do you want it to give me it's saying when I put the blood sugar, and it's not going to give me anything? But my parents still want me to give a correction. Because if I don't, it's still gonna go up.
Scott Benner 46:36
So it gets it doesn't get a little confusing when the when your pump says one thing and your parents say another thing? Yeah, yeah. Do you think? Let's see, do you want to go to college one day? Have you ever thought about that?
Caitlin 46:48
I do want to go to college, but I feel like I would want to go with my friend Sophie. Who's because we both want to be bakers. So thought why don't we go to like college for like coronary school. And also she's very like, at school. She's very strategic about my diabetes. She's like, She's like, Caitlin, your alarms going off? Are you alright?
Scott Benner 47:13
She pays attention to it for you.
Caitlin 47:14
Yeah. It's like she puts her friends before her almost. Oh,
Scott Benner 47:19
that's kind of nice. Does she? Does she do that with a lot of life or just with you in with a diabetes?
Caitlin 47:25
I have no clue. But she does that a lot. Like if we're like, if one of us like fallen were hurt and we're like bleeding. She'll, she'll be the first person zoom over like the flash and go. She'll be the first person over there.
Scott Benner 47:38
Which flashes your flash? kailyn. Which one? Do you like the best? Like the guy on the show? Grant Gustin I just say that you just say the flash, you don't have an attachment to it at all?
Unknown Speaker 47:49
No, I don't really I'm not into superheroes at all. Very nice. I'm
Scott Benner 47:53
looking at baking schools for you. Oh, hey,
Caitlin 47:57
Sophie and I were planning on starting our own bakery company called the Baker's to,
Scott Benner 48:04
like your own shop.
Caitlin 48:05
Yeah. But we were still planning on where we want to do it. We were thinking New York. Yeah, you already.
Scott Benner 48:14
You're already planning on leaving your parents?
Caitlin 48:18
Yep, yeah. But I'm not really leaving my family because a lot of my family lives up and on my dad's side. A lot of my family lives up in New York. So I won't be that lonely. Okay.
Scott Benner 48:29
Johnson and Wales has a campus in Miami. It's a good cooking school. They have Baking and Pastry Arts there. He tend to one faculty ratio. This is good. Alright, we'll write that down somewhere because you have a couple years so. Yeah. Right now you're just trying to get through middle school and stay away from boys? Pretty much. Yeah.
Unknown Speaker 48:54
almost about to go to middle school.
Scott Benner 48:57
Really? So what grade right now? You're in fifth grade? Yeah, Caitlin. I have been lulled into believing you're 32 years old while we're talking. Don't laugh. I wasn't kidding. Oh, you sound very like mature. Why are you the oldest? You're the oldest, right? There's just two.
Caitlin 49:20
Yeah, I'm the oldest of my brother.
Scott Benner 49:22
You boss him around a lot. Yes. Yeah. All the time. does it bring you a real pleasure to tell him what to do? Yeah, because my wife looks happy when she's telling me what to do.
Caitlin 49:32
Cuz when I tell him what to do. I feel like the adult.
Scott Benner 49:35
Oh, you like being in charge? Yeah, yeah. Caitlin, I think that's a psychological issue. But you're too young to worry about it right now. No, seriously, I am. When my wife's telling me what to do. She never looks happier than in that moment. She loves to. She also likes to be right. Do you like to be right?
Unknown Speaker 49:55
Sometimes, not all the time.
Scott Benner 49:57
Does it make you happy to be right.
Caitlin 49:59
It Because then I feel like I knew something that I knew was right. And I do that a lot.
Scott Benner 50:05
Yeah, you're right a lot.
Caitlin 50:07
Um, I, because sometimes we'll be late. Like, if we're doing like a fast pass or whatever, we'll be late for something. And I'll be like, and so my mom, like, we're almost about there. And then she'll be like, why don't we take another route? And I'm like, What if we take this route? We get there quicker. And then sometimes we'll be late for it. And then I'm like, Well, I was I was right. We should have done that.
Scott Benner 50:30
Is it more satisfying to be right? Instead of your parents or your brother? Like, who do you like to be right? More? Correct, then?
Caitlin 50:38
My brother, your brother? Cuz it makes me feel smarter than him?
Scott Benner 50:41
I gotcha. Well, you're older than him. So that makes sense. Right? Yeah. Gotcha. Is your dad very involved with your diabetes? Besides the the carbs and stuff around lunchtime?
Caitlin 50:53
Yeah, he's very. He's very old to it. Sometimes.
Scott Benner 50:58
It doesn't you like that they're involved?
Caitlin 51:01
Yes. I love that they're involved.
Scott Benner 51:03
Do you want them to be involved? forever? Yeah.
Caitlin 51:08
For long for it till I die.
Scott Benner 51:11
Well, what about this? Let's paint a picture, right? We get we get past this. We find some boy eventually, one day, like 20 years from now. And he stops talking about Star Wars long enough that all right, I can go out with this kid. And you're at home with him and you're married now and it's time to eat. You're gonna call your dad and ask him how to Bolus?
Caitlin 51:32
Well, first of all, I'd have to teach the boy I'm with I'd have to teach him how this works.
Scott Benner 51:36
You're gonna expect them to help you too.
Caitlin 51:38
Yeah, I would expect him. I mean, he's living with me.
Scott Benner 51:41
100%. That's good. I don't disagree with you. I was just asking. I think that one day, you should meet somebody who cares about your health and yeah, be willing to help. That's very cool. Wow. I think we've learned a lot here. Caitlin, don't you?
Unknown Speaker 51:56
Yeah,
Scott Benner 51:57
yeah. Have you said anything you wish you didn't say? I don't know. Remember when you admitted to spreading the Coronavirus from Florida?
Unknown Speaker 52:05
Oh, yeah. I kind of get that a bit.
Scott Benner 52:12
I'm not laughing at you. I'm just laughing. Have we talked about we missed anything? Is there anything you'd like to talk about that we haven't spoken about?
Unknown Speaker 52:21
so much? Um,
Scott Benner 52:27
what would you want other kids to know about diabetes? That kids that that have it that maybe you're struggling and like because you don't sound like you're struggling with it? You sound like you're pretty okay with this.
Caitlin 52:38
Um, don't be scared or nervous about it? Because you'll get through it. And you'll be perfectly fine. Once you're through it.
Scott Benner 52:49
You think people worry? Did you ever worry?
Caitlin 52:51
I did worry a lot.
Scott Benner 52:53
What was your concern?
Caitlin 52:57
Like it wasn't going to get it was going to get worse from where it was
Scott Benner 53:02
like your blood sugar's would just go out of control, and you wouldn't be able to fix them.
Caitlin 53:07
I have basically the whole thing. I just, I don't know why I got really nervous when I first thought of it. Because part of it was because I never liked needles. I was a little kid. And then figuring out I had to take shots every single day and prick my finger every single day. I was so nervous. I was like, I'm never I'm never gonna get anywhere from this.
Scott Benner 53:29
I've never met anybody who likes needles. But it's funny. It's funny when people talk about it. People are always like, I was one of those people who didn't like needles. And I always I never say it. I'm saying it to you now. Right. But I've never said it before. I always think are there people running around who enjoy getting stuck with needles that I don't aware of? Like, it's a it's a funny thing to say it's like, you know, it's like saying it's like, it's like saying, you know, I'm not one of those people who likes falling into a volcano. Yeah, no one likes. Okay, right. Right, right. But there's no one around. It's like, Oh, you know what my favorite thing to do is, I love to fall into a volcano. The best thing ever. You don't hear that. But everyone always starts with that, like, well, I'm just one of those people who doesn't like needles. I'm afraid of needles. Like, yeah, we all are afraid of getting something stuck into us. You don't I mean, I think it's the level of tolerance you have for it. So when this is all going on, when you're first diagnosed, and there's needles coming at you when you're like eight years old and everything, and does it feel like Do you remember how it felt? It's such a weird question for somebody. Yeah. But what does it feel like to get diabetes?
Caitlin 54:38
I was so scared because I thought that because I knew my life was my life was like turned upside down. And it was going to be stuck with me my whole life. And I just thought, okay, I didn't know I had no clue about the Dexcom and Omnipod and what they did. So I just thought you had to take shots and needles every single day and I would be living For this, I have been living with this for like, I thought I would be living it for like my whole life just doing shots and needle shots and needles without the Dexcom an omni pod, because I had no clue those two exist existed at the time.
Scott Benner 55:12
So just it's scary to feel like this is this is the rest of your life. And it's always like this. And is it better now the way it is now? For you?
Caitlin 55:20
Yes, it is very, very happy. And because I don't have to do that every single day. Now, how often
Scott Benner 55:26
do you think you get shots now? Do you still get a needle once in a while? Nope. Not at all.
Caitlin 55:32
Unless if my Omni pod fails, and we don't have an extra pod by mom will have a vial? My mom will keep a vial of insulin and syringes in the bags just in case something goes wrong.
Scott Benner 55:45
Yeah, but it doesn't end up happening very frequently to
Caitlin 55:48
that much. Unless if my unless of my we don't have to change the Omni pod. And the insulin went bad and like my blood sugar's keep going up after having like 50 units in me. She'll have that sometimes.
Scott Benner 56:03
What about tea? Um, how often do you end up testing with a meter?
Unknown Speaker 56:09
I'm
Caitlin 56:11
not very often sometimes when I go swimming, and I'll have to eat like, right when I get out my Dexcom it wouldn't link up to my, my phone. And we'll be eating like right when I get out. So I'll test their error or if my arm or if my Dexcom falls out, which did happen over though, over the last weekend. Okay. Oh, and I went to Disney.
Scott Benner 56:34
So if there's a some sort of a breakdown of the technology, you go back to it. Yeah. Do you ever just check to be sure I think Arden tests probably. I bet your heart and soul tests about 15 times a week. But it's usually clustered on days where the CGM is either newer or older.
Caitlin 56:57
I do sometimes because it my Dexcom it's sometimes it gets confused, it gets a little confusing because it will say I'm at like 45 double arrows down when I feel like I'm at 90. So we'll test there like if, like, it'll be like, my parents will be like, are you do you feel fine, because it says you're at 45 going down going down and I'm like, I feel fine. I don't feel dizzy or lightheaded.
Scott Benner 57:23
What happens when you test in a situation like that?
Unknown Speaker 57:27
Um,
Caitlin 57:28
I'll test I'll see where I'm at. If it's different, we'll calibrate it or unless if it says it's different, but then it the arrows it show it's starting to come back up. And we won't do anything about it. But if it says it's still at 45 going down for like, for like the past like 15 minutes, and it's still going like that we'll calibrate it.
Scott Benner 57:50
Here. Yeah. There's all kinds of different opinions about how when to calibrate or not calibrate. CGM people are very passionate about those conversations. But I hear what you're saying. I think when there's a discrepancy, or when you don't feel the way it says it's always a good idea to test right away. It's the best thing. It really is. Are you thinking about? Or do you even know anything about like, we use the Omni pod. So do you know anything about the Omni pod horizon? The idea of like, one day, there'll be like a little computer program. That'll that'll tell your palm how much insulin to give you and have you and your mom ever spoken about that?
Caitlin 58:31
I think my mom has talked about it, but I don't really know. It's not something you're playing right now. But I do know she I think she was talking about word like Dexcom and Omnipod. We're going to we're coming together or like conjoining some at some point.
Unknown Speaker 58:49
No, no. Oh, that's it.
Unknown Speaker 58:51
Yeah. My mom says that's horizon. So yeah,
Scott Benner 58:53
there's something you guys are talking about. That's cool. That'll be like a year from now when you're like gonna be 12. You know, in on May 30 2021. That I remember your birthday. Yeah, you have to be impressed. You don't know that about me. She'd be impressed. But then an hour later, I know your your birthday is may 30 is a huge deal for me. Just so you know. I'm incredibly not good at remembering. Almost everything.
Unknown Speaker 59:22
Same here.
Scott Benner 59:23
It's weird. It's weird that I'm the one doing this podcast. It's even weird to me. Like when I start talking about diabetes, and people are like, Oh, that's great. I'm like, Huh, how did that end up being? such a weird thing? I should probably be. I don't know what I should be doing for a living. I don't think it's though. I didn't think it was gonna be this though. What do you want to do? I mean, the bakery thing is a real thing. I want to do that.
Caitlin 59:46
Yeah, that's something I'm planning on doing. Because my family Smith, because some of my family does baking like my great grandma. She bakes a lot. And sometimes for like parties. I'll do something with my mom.
Scott Benner 1:00:01
I went to baking school for three years when I was in high school. I couldn't make bread like you know, somebody makes a loaf of bread. I can make 150 loaves of bread at a time. What I know how to bake for like an industrial sized bakery. That's what I learned to do. Because I didn't want to go to high school. So I went to baking school, and it split my time. That's probably probably not something they do anymore. And it wasn't a good idea. I should have went to high school just so you know, these mad baking skills that I don't get to use very often, although I'm going to use them today because Arden wants cookies. That was that was what was told to me last night that I needed to make chocolate chip cookies today.
Unknown Speaker 1:00:42
Cookies.
Scott Benner 1:00:44
Do you like cookies, though? A little bit. You'd like them when they're thin and harder or puffier and softer.
Caitlin 1:00:52
Like a mix of them, because sometimes they'll be hard or softer. You really don't. cuz sometimes you can never determine if it's like that because sometimes they'll be puffy, but hard or thin but soft. They can change people are giving you puffy but hard or thin but soft cookies. Those
Scott Benner 1:01:10
people do not know what they're doing and baking cookies. Okay. You take a bite, you make a little face, you put it down. Very, very judgmentally. Okay, then you just push it into the trash and let them know with your actions. You have crappy cookie, and no one wants to eat this. It's so easy to do the right way,
Caitlin 1:01:32
then, I mean, the only reason why I like both of them. I mean, it's just a chocolate chip cookie. I mean, if you give me a cookie, and it's light, and it's puffy, but hard. I'll still eat it. I mean, it's a cookie.
Scott Benner 1:01:42
Caitlin's like any chocolate chip cookies a good cookie, Scott,
Unknown Speaker 1:01:45
any cookies. Good.
Scott Benner 1:01:46
All right. Listen, I was thinking it might be interesting for a second. Could I talk to your mom for the last couple of minutes? Okay, yeah. Hey, wait, Caitlin. Wait. Yeah, I really enjoyed talking to you. I want to tell you by Did you have fun doing this?
Unknown Speaker 1:02:00
Yes.
Scott Benner 1:02:01
Do you have any idea what we talked about? Anything like if I said to you right now, what's the little blurb gonna say? In your episode? Do you have any idea what it's gonna say? No, I don't either. I don't think that we talked about whatever. We talked about whatever. Yep. All right. Thank you so much for doing this. I really appreciate it. I hope. I hope you don't have the Coronavirus. I don't. Right. Good girl. Let me talk to your mom. Okay.
Hello. Okay. We're still recording. Can you put the headphones on for a second? Yes.
Unknown Speaker 1:02:40
All right. Oh, goodness.
Jessica 1:02:44
Got cords wrapped around everything. Can you hear me?
Scott Benner 1:02:48
What did you do to that girl? Why is she like 35 years old?
Unknown Speaker 1:02:51
I don't know.
Scott Benner 1:02:54
Either you or your husband like that?
Unknown Speaker 1:02:56
Ah, no.
Scott Benner 1:02:59
You're not like she she's the most responsible person in the house? Sometimes? Yeah, definitely. I'm just like, I'm talking to her. And at one point, it occurred to me I'm like, gosh, she's 11. Yeah, I really is, when you sent me a note, I want you to know that your note has mimicked a number of them that I've gotten over the years from people are like you don't understand. My kid is so good at talking. And so mature, and some of them are but some of them aren't. And yours really, really really is. Like, she's just like, right on. I'm like, Hey, is there anything we shouldn't have talked about today? Like, what do you think anything? She's like, I probably shouldn't have said that. We went to Disney. I was like, Wow, she even knows. Oh, my God. I was like, I just thought I thought Wow, she's even aware of that. Like, didn't even like she has like she was able to like, think back over the hour and go, Oh, you know what, I wish I wouldn't have said this. Right. But I said that. She was like funny without being mean about her brother. She was real. Were you listening the whole time?
Jessica 1:04:05
A little off and on. I had to make a couple of phone calls to insurance companies and make sure you know, we get supplies, and all that good stuff. So in between calls, I was kind of like, poking my head at the door. She did
Scott Benner 1:04:16
a terrific job. She was really really good. It was excellent. I'm glad Yeah, no kidding. She does want you to be involved with her diabetes care for her whole life.
Jessica 1:04:25
her entire life. So I must live for ever. 100,000
Scott Benner 1:04:29
more years. She has to go Yeah. And if she does get married, although relationships are not something she's thinking about. If she does get married, the boy is going to have to understand her diabetes. She said she's gonna have to teach it to him.
Unknown Speaker 1:04:46
Cuz she won't do it.
Scott Benner 1:04:48
You're like, yes. You think she's looking for for a different caretaker?
Unknown Speaker 1:04:52
Yes, that's that's probably what it is.
Scott Benner 1:04:55
She said she enjoyed bossing her brother around. She likes being right sometimes. She said, I told her my wife loves being right. She there's nothing more than my life. My wife enjoys them to tell me what to do at work, right? She just she's in her element in those moments. Yeah, it was really she was really delightful. Yeah, it was really nice. I don't know, when this will be out. But I think because we talked about Corona, I'm probably gonna have to push it up and have like, two years from now, like, you know what I mean?
Jessica 1:05:32
Wait, it's not gonna make sense to a lot of people. Or maybe it may,
Scott Benner 1:05:35
or the bigger problem would be six months from now, you know, everyone's dead. And we're joking around about curl, right?
Jessica 1:05:43
Not anymore. I know. We're like, I'm like, Oh, it's probably not funny. It was funny. In the moment when we were there. You know, Friday, we get up there Friday, mid afternoon. And we're like, What's good? Why is I mean, Disney Springs was empty. Because I believe everybody was at the parks. But there was no word of closures of anything. As far as we knew, I mean, we were on vacation time. So I wasn't watching the news, I wasn't paying attention to anything I was, you know, it's interesting, getting a family of four packed up to leave for seven days. So, and my friend was the same way. She had her family of five, she was packing up, you know, to prepare and everything like that. And we get up there, we're enjoying our time, you know, and all of a sudden, you know, we're, I'm looking at my phone, I was like, Oh, this is a little more real than what I thought. And I work I you know, working 50 plus hours a week, you know, outside of the home, so I don't have the TV on hardly ever. So it was I was like, Oh, my first down minute. I'm like, Oh, this may be more real than I anticipated.
Scott Benner 1:06:52
We it's funny. I was talking about this with Kelly a little bit too, that. Just the idea of it. It's just that if we wanted everybody to know right away, the federal government would have had to step up and be like, that's it. Everybody get into your houses turn on your television will explain to you why. When you let it trickle out like this, there are people who are more connected to the news, less connected to the news. Some people who are working so much are just like you got busy. And so like, Is it fair to say that a week and a half or two weeks later, if you knew what you knew now, do you think you would have went to Disney?
Jessica 1:07:25
No, no, not at all. Not at all. I mean, why we brought plenty of hand sanitizer because, you know, there was a run on hand sanitizer. We couldn't keep it on the shelves in the store. I just everyday somebody would come and ask your hand sanitizer. I was like, Oh, we haven't gotten any in in two weeks. You know, I'm not sure exactly. You know, you soap and water. And don't touch things. You know,
Scott Benner 1:07:45
that that's not even enough to make you think like, I wonder why people are asking now have they come in and been like, do you have any zombie guns? Why is everyone asking for a zombie gun?
Jessica 1:07:56
I may have turned on the news that
Scott Benner 1:07:59
hold on. That's the third guy they asked about zombie booby trap. Let me just find out what's going on here now. Right? Yeah. Now it's it really is interesting how it gets how slow rollout? Everyone, it's because you see people on Facebook. You know, there's different levels of virtue signaling going on around around Corona around life in general. But that idea of like people like to say smart things to make sure you know, that they know like that, you know, because who are you really telling on Facebook, the five people who follow what you're saying? What are you exactly fixing the world by making sure that Patti and Karen know about the the Coronavirus, like they haven't figured you know, but but so everybody's doing that thing. And I always think like, you know, there are people who don't know, they just aren't paying attention. If you need any more, you know, backing for that, right? Let's see, let's just do this, like how many people voted in the 2016? election? You'll see why I'm doing this in a second. 2016 United States presidential election simple. How many people are well listen, it's easy to do this way. Right? It looks like one person got 65 million votes. One person got like 62 million votes. Okay. What's that, like? 130 140 million people. Right. Right. Now, let's Google this. How many people live in the United States. So there are 327 million people in the United States given that they're probably not all a voting age. It does seem kind of suspect that only about 140 of the 140 of the 327 voted like so. There's just some people just aren't even like concerned with the presidential election for example, or now. You know, I don't listen to the weather. Right. I know people who constantly know The weather and I am forever walking outside being surprised by the weather. I opened the door on my golf training.
Jessica 1:10:07
Where we are there is no point in listening to the weather. It's it's gonna rain. It's not gonna rain. It's you know, Florida.
Scott Benner 1:10:13
I'm just my point is there's things that people, you know, tend to care about things that people tend not to care about. Everybody's different I because you didn't, as she was telling me that you guys were there. I did not imagine that you were the kind of people who were like, Huh, there's a really good reason for us not to do this. But Screw it. We're going anyway. Like, I know you well enough online to think that that's not who you are, right? Oh, no, no, not at all. It's it's just it's interesting to watch it all go. So let me ask you before I let you go on, do you have more?
Unknown Speaker 1:10:43
Oh, yeah. Yeah. All day.
Scott Benner 1:10:46
You're like, I have nothing but time Scott later, we're gonna play poker for potato chips.
Jessica 1:10:51
Exactly. I you know, I had her do a lesson plan, you know, for the week that she's gonna be with my mother in law. You know, her and my son are going to be with the mother in law for the rest of the week to do school lessons and you know, a sense of normalcy as you as you call it, during less. So hopefully they'll follow through on it.
Scott Benner 1:11:10
Just you know, she might not be willing to go because I told her she still got four more days before she knows if he has Corona or not.
Jessica 1:11:16
Right? she does. She does.
Scott Benner 1:11:18
She might be like, no one's coming in this house. And I'm not leaving Jessie. But how does she do with her type one with her diabetes stuff? Are you bring me in for an 11 year old? Are you pretty happy with how she handles it?
Jessica 1:11:32
Oh, very, very amazingly. Well, I know she she does. You know, as an 11 year old as a child, she does tend to, you know, fight on some things. But she would fight me on something else. If it was not diabetes. So and those are the times when I just kind of okay, I take over. And I do I do most of the care for her. But I rely heavily on her to do it. At school. Yeah. And we don't do that communication where you do with Arden at lunchtime, she just doesn't have that time she she is almost embarrassed to pull her phone out and be like, Hey, Mom, it's lunchtime. What do I need to dose. So we've come up with writing the carbs down on it used to be a piece of paper, but she we found that she wasn't eating everything. So we just write it on the packages, and she adds it up what she's going to eat. And if she decides she's gonna eat more, she'll dose a little more so that that tends to work for us. So I like that a lot.
Scott Benner 1:12:31
I obviously, just the more
Jessica 1:12:33
you don't follow cards,
Scott Benner 1:12:35
the more fluid just throw that insulin in and go ahead and eat. Let's see what happens.
Jessica 1:12:39
Yeah, we do that when it's not like pre packaged or anything. We'll just be like, Oh, that looks like
Scott Benner 1:12:45
sound like you're doing terrific. You really do. I appreciate. She's like she's like, there's episodes my mom tells me not to listen to and I was like the ones about the weed in the drinking. She goes yeah. I said, Did you listen to her not listen to them. And she goes, I didn't. She's like, but I did read the descriptions. I was like I said, well, there's one coming out about sex pretty soon. Please don't listen to that one. She sucked. Okay. Yeah, she was really good. Like, she just was terrific. I'm assuming you're very proud of her because she was. Yeah, she was excellent. Cameron apparently is a mindless pain in her ass that only wants to talk about Star Wars. Just so you know. When I told her one day, she'll be married to a man who's a mindless pain that only wants to talk about Star Wars. Is don't expect too much growth out of boys. Just see it now. Yeah, we're gonna, we're gonna pretty much be the same, just taller. So yeah, well, I really appreciate you guys doing this. And I just want to say thank you to you as well.
Jessica 1:13:43
Thank you for allowing us to come on. I mean, I was not expecting I told her. I was like, Caitlin, I'll send this email out. But do not expect a response anytime soon. Don't expect you know him to say yeah, I'll do it or anything like that. So when I got the reply, I was like, Oh, okay. She held up her end. And I will tell
Scott Benner 1:14:01
you this, like, in all honesty, episodes with children don't do as well. There are people who you know, will say, like, give us skip it because they're just like, I don't wanna hear a kid talk for an hour. But I think those people are making a mistake number one, but number two, for every person who doesn't want to hear if there's somebody who wants to hear it. And so there's that's her story. Still someone's story, right? And she's still a person with type one. And I think people need to hear it. I mean, she told me something she learned from Tommy's episode. Yep. Right. And
Jessica 1:14:33
she wanted to hit she wants to hear more from kids. And that's why she was like, I want to go on mom. If Tommy can do it, I I can do it.
Scott Benner 1:14:40
Well, I'm glad and I hope a bunch of kids hear her and then they're motivated to Pre-Bolus or pay a little closer attention. You know, whatever it ends up being, just to know that there's another person out there like them who's, you know, at Disney and doesn't want to Pre-Bolus because their friends are you know, and she's told me she's like, sometimes my friends are eating and I can't eat and I'm just doesn't like it. Yeah. So
Jessica 1:15:03
we try to catch it beforehand. But you know, when you're in the moment, it's like oh, no.
Scott Benner 1:15:07
easy to forget.
Jessica 1:15:08
Yes, it is. That's when we go a little heavier on the insulin.
Scott Benner 1:15:12
Sounds like the wind. The croissant went very well this morning, I thought
Jessica 1:15:15
Yes, it did. I'm amazed at myself. I'm still trying to tackle that croissant.
Scott Benner 1:15:22
And I got it this time. We're still Arden had cereal this morning with what I'm gonna call not quite enough. Pre-Bolus but she's at 150 so she's doing okay. You know, it's like a giant I don't know. And she didn't measure it. I don't know how much he ate. I don't even know what kind of cereal it was to be honest. I was already talking to Caitlyn.
Jessica 1:15:39
Yeah, so probably a bunch.
Scott Benner 1:15:41
Yeah, just hit her with a big sledgehammer full of insulin and let her eat the cereal.
Jessica 1:15:45
There you go. I that's where I've come down to I was like, you know it, we'll figure it out. It will. Sometimes it's gonna be a little more sometimes it's gonna be a little less she she does good with measuring things out. I'm like, you don't have to do that. She's like, No, I want to I said okay, and she measured off the cereal and it's like, that's a snack. Like no it for a little more on there. But yeah, she she does very well with you know, dosing and things like that.
Scott Benner 1:16:14
It really sounds like it it really does. It's very cool. Well, congratulations, you have a lovely family. As long as you guys all don't
Unknown Speaker 1:16:21
die of Coronavirus Coronavirus,
Scott Benner 1:16:22
I think you're gonna have a lovely life.
Jessica 1:16:27
You got to be light hearted with us. You can't take everything too seriously. You don't have to live your life normally. Listen, I
Scott Benner 1:16:33
have to tell you, I think joking aside, I think this is an incredibly serious thing. But it is not gonna stop me from trying to stay light hearted about it or because we're trapped in our house. Like what Brian would get what point is not going to be all like Lord of the Flies in here. So, you know, people are being cool. Right now we're found, you know, we've had to tell my son a couple of times, because he'll he goes fishing for like, Yo, I was gonna go play basketball or something like that, like that. We're not or, you know, I heard the other day, my friend wants to come over and help me put my clothes away from college. And I went, yeah, she's not coming. So you know. I guess he's doesn't realize he's 20. So it's perfect. Right? Because we haven't gotten to that conference. Or maybe he just likes a free place to live and doesn't want to rock the boat. I don't know. Exactly. But he hasn't like pushed back. Because I think he knows it's serious, too. You know?
Jessica 1:17:20
Yeah. So now let's just follow the rules for a couple couple more weeks and
Scott Benner 1:17:24
hopefully help some people not get sick. Exactly. Exactly. Wish you a ton of luck. Oh, thank you. Yep. And I will talk to you soon.
Unknown Speaker 1:17:32
Yep. Thank you. Have a good day. You too. Bye. Bye.
Scott Benner 1:17:38
A huge thank you to one of today's sponsors, GE Vogue glucagon, find out more about chivo hypo pan at G Vogue glucagon.com Ford slash juice box. you spell that GVOKEGL Uc ag o n.com. forward slash juice box. Since it got thrown into the episode, checkout touched by type one.org. And all the other sponsors there's links right there in your show notes and links at Juicebox podcast.com. Wasn't Caitlin delightful. I mean that from the bottom of my heart. I enjoyed our conversation together so much and I hope you did too. I'll be back next week with much more of the Juicebox Podcast. See you soon.
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#457 Jon Marks
Sports talk show host with type 1 diabetes
Jon Marks is an adult living with type 1 diabetes who is also the host of WIPs afternoon drive show that he co-hosts with Ike Reese.
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or their favorite podcast app.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello everyone and welcome to Episode 457 of the Juicebox Podcast.
On today's show, we'll be talking to john marks john is an adult living with Type One Diabetes. He was diagnosed in his 20s. Today's men talk about his early management things, he figured out where he is now and he's gonna tell us a little bit about his job. And that job is pretty cool. JOHN is a sports radio host in Philadelphia, he works on the station that I grew up listening to sports talk radio on, john, we're gonna talk about diabetes for a while, we're gonna add been to some sports, but then he's got a really important message on the back end, and I don't want you to miss. So if you get into the sports stuff, and you're like, oh, he stopped talking about diabetes. Hang on. Just one more second for me. Please remember, while you're listening that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, please always consult a physician before making any changes to your health care plan for becoming bold with insulin. During this hour, I'm going to mention the diabetes pro tip episodes to john if you'd like to listen to them, they start back in Episode 210, where you can find them at diabetes pro tip.com. They're also available at Juicebox Podcast calm.
This episode of The Juicebox Podcast is sponsored by the dexcom g six continuous glucose monitor get the CGM that my daughter and john Marks wears at dexcom.com/juicebox. And you can take the Omni pod for a test drive, go to my Omni pod comm Ford slash juicebox. Find out if you're eligible for a free 30 day trial of the Omni pod dash. That's actually you using it for 30 days. Or you can ask for a free no obligation demo of the Omni pod. And if you get that they'll send you out a pod that you can wear and try on it doesn't work. But it will give you the feeling of what it will be like to wear the on the pod. So whether you're going to look for that free 30 day trial, the dash or just try to get that free, no obligation demo, everything you want is at myOmnipod.com/juicebox. Last thing before we start check out the T one D exchange at T1dexchange.org/juicebox. Are you in the studio right now? Like are you going to do this then work?
Jon Marks 2:35
Yes, I came in at about 1030 to get it like an hour's worth of work done. And then I'm going to do this with you. And then I'm going to bounce out and then finish up my prep and get ready to go on the air. Oh, that's
Scott Benner 2:46
very cool. So we're recording already. This is very, very laid back.
Jon Marks 2:51
I listened to a couple of a couple of recent podcasts over the last week or so to get a feel for what it was. So I got a pretty good idea. You do a good job with it.
Scott Benner 2:58
Thank you. I listened to your show yesterday. I thought so anyway, go ahead Introduce yourself.
Jon Marks 3:06
My name is john Marx. I work for 94 Wy pm I am a talk sports talk radio host. You can listen to me every Monday through Friday from two to six. If you get the radio.com app and Scott, thanks for having me on the show man what's going on?
Scott Benner 3:23
I Well, I'm gonna have to go back probably to when you started in Philly, and I I grew up in Bucks County. So we listened to sports talk constantly. I like my earliest memories are walking around like a baseball card shop and hearing like Glen Mac now talk about like sports. And I love the like what I think what you do is is incredibly difficult to make look easy, you know to have these like very short conversations that are cogent. And somehow they're there unto themselves but then they build along the hours that you're on the on the on the radio, I think it's it's a really cool skill to have. And so I love listening when I get a chance I love listening to people talk I don't put on as much music as I even want to because of that. And I felt like one day I heard you offhandedly say to your co host that you had diabetes and it never really came back up into my head again. And then what was it now maybe a month or so ago? I was listening to the radio and I could hear your Dexcom beeping and I thought How come I've never asked john to come on the podcast. So here you are.
Jon Marks 4:30
You know it's funny how many diabetics are out there listening and know what that Dexcom alarm sounds like because between the tweets your I guess you emailed me or I don't know if your direct message me on twitter but between the DMS and the emails and must have got a dozen people saying hey, I'm on the Dexcom two or
Unknown Speaker 4:47
Hey,
Jon Marks 4:48
my daughter's on the desktop so it was not something I expected when that when the damn alarm goes off because you know you can't silence it right away because it puts the volume all the way up. Yeah, so everybody can hear it but it is It's funny how it works out sometimes. Isn't
Scott Benner 5:02
it interesting that you get that money responses? I immediately thought, you know, so seriously, I dropped my daughter off at a salon. She was having her nails done. And I was waiting outside listening to your show. And I heard the beeping and my brain thought that's not right. Arden's not low. I know she isn't. And then I was like, wait a minute, it was muffled like that wouldn't have sounded like that. And then it occurred to me, I was like, I remember this guy saying he had diabetes a couple years ago, this is what this is. So that day, I i were you trying to you adjusted your diet? Right?
Jon Marks 5:37
I'm that particular day.
Scott Benner 5:38
Yes. That what was going on and you were trying to eat right? Or something like that? I heard you saying,
Jon Marks 5:42
Well, I mean, I have ever since the pandemic started. So we're going on a year now I really decided that I was going to take advantage of not being able to do anything and really start exercising and eating better. I would say my diet was was usually you know, pretty good for being a diabetic but I really kind of took charge of it. I don't remember exactly what it was that day. You know what it was it since it was about a month ago, Scott that you know, my basil rates were probably a little bit off because of the the temperature change. Yeah. And what it does to me, but I mean, honestly, like, it's not it's not unusual for me to get a little bit low during the show and because I have an Apple Watch, which is amazing because I can get the Dexcom reading right on my watch. It's like it's you know, it's a it's amazing for any diabetics out there. You see going down and I know that I'm in a commercial break so what am I doing I'm trying to eat a granola bar during the commercial break, but doesn't work right away. So sometimes something like that will happen and you know, that's not a common with me, Scott, I mean, you know, we all have our highs and we all have our lows and we're just trying to try to manage them as best we can.
Scott Benner 6:50
So you feel a little when the weather warms up you need a little less you know what it's it's
Jon Marks 6:55
yes, I do it's um it's weird because weather warms up for a couple days and I switch it and then you know the Northeast in in spring and late winter then it gets that's 30 degrees 20 degrees again, so then you know, sometimes it it backfires on you. So yeah, yeah, for me when it gets warm, I need less when it gets when it gets cold, I need more and I think it's like that with a lot of people kind of pumped to us. I have an omni pod. I don't have the I don't have the dash I inquired about it and my insurance was telling me that I'm not eligible for it. And I had to go through the appeals process which I guess I'm currently going through they said it could take about three months but I'm an omni pod insulin pump user
Scott Benner 7:39
three months April May June I'll tell you what, if you wait that long, I assume their algorithm is going to be out so they on the pod five will come out and then your Dexcom and your on the pod will talk to each other and it'll adjust your basal insulin and things like that automatically. So I should just wait you maybe you should that's presents pretty trust me that's pretty great technology. My daughter's using an algorithm right now and it's fascinating to watch it work amazing. Yeah. might stop some of those lows for you. I'm wondering when you're talking does it You said you get you can get lower while you're talking so I think of your show is like I think of you as the driver and as like is the like the color a little bit sometimes. And so you're so you're you're talking a little more than he is and your pace like your your quick talker like I am that does that actually burn carbs for you? Do you get low just from that do you have to eat during the show? I guess is my question.
Jon Marks 8:32
I do I have a routine at are actually we just changed our clocks. So our break schedules are a little bit different now but I used to before we would go we would have a commercial free segment that would go from about 440 until 520 save about 40 minutes so during that break, I'm starting to get hungry anyway because lunch had been you know three or four hours before so that's when I would typically eat one of my protein bars that I have. So now that it's a little bit different but yeah, I mean it does it does it is it Scott when I have when I feel like I have a good show. When I get done in off the air. I just like mentally I'm just exhausted. Like oh yeah, nanny now I have to drive 55 minutes home and have two little kids is running and screaming and try to eat dinner and then get them in bed and everything else. So it goes quick.
Scott Benner 9:23
Yeah, does I have to tell you I it's not too similarly if I if I do this for an hour for 90 minutes for there's a span of time afterwards, your brain is scrambled like from listening and talking and trying to say the right thing and not say the wrong thing. And you know and all the things that you want to get out and everything it is exhausting talking like this. I just didn't realize it would it would affect blood sugar. Like that's kind of interesting.
Unknown Speaker 9:49
I think you can
Jon Marks 9:50
for people out there that are listening that are familiar with sports radio, and I'll just say like the Northeast which is Philly, New York and Boston, people not only take their sport It's serious, but they take their sports radio serious. I mean, it really is. It's a way of life and now heated conversations talking about quarterbacks and things like that. Looking at your mentions on Twitter, and people wanting you fired or threatening you or things like that. It gets it gets very interesting. So I don't know if my my my mean mentions take away from my blood sugar, but I think a long show sometimes.
Scott Benner 10:23
It's amazing. How old were you when you were diagnosed?
Unknown Speaker 10:27
So it was
Jon Marks 10:28
August 7 2002. So I would have been 24 turning 25 I was working. I was in between. I was in between jobs. I had left a an office job that I was working at and Center City, Philadelphia. I was working at a restaurant part time. And then I was working in another restaurant part time. So a two part time restaurant jobs. The one restaurant it was it opened like was a new restaurant, it opened and it did poorly from the start. So it turned into one part time job that I had. And I remember I was at my read, I was at my other job and I went across the street to a convenience store. And I bought two of the biggest jugs not like the 32 ounce jugs of Gatorade, but like the superduper big family size jugs of Gatorade because I was so thirsty. And I I couldn't quench my thirst. And I just remember chugging these two things of Gatorade. And the guy that I worked with looked at me and said, What the hell is wrong with you? Yeah, like, dude, you got to go to a doctor. And I'm like, I know I do. I think I have diabetes that was on. That was on August 6. The next day, I took a train went up because I didn't have a car I was living in the city took a train up to my parents house in suburban Philly, got her car and drove to the doctor. And that's where the that's where my my family doctor that I had since I was a baby was very upset because my blood sugar was 720. And he realized what what that I was diabetic at that point. That was August 7 2002. How did
Scott Benner 11:59
you know? Is it in the family? Are there any other endo issues in your family? No, I'm
Jon Marks 12:03
the first I don't even have anybody type two in my family. So I was the first it was just that, like the just not being able to quench my thirst. And I just got just what I thought it was, well, nothing else made sense. And probably two weeks before that I had a low. Again, it was on a train. And I remember calling my mom and saying I feel really sick. Can you come pick me up at the train station, I'm not going to be able to walk and she brought a Gatorade with me. And I drank the Gatorade and I felt much better. But what I didn't know was my sugar was probably 50 because I had ran to the train because I almost always missed the train. And I was hypoglycemic. So my sugar was low. So then it all kind of made sense at once. It was like if you watch the if you watch what's the what's the movie with with Kevin Costner where he's it? Anyway, he's, he's like limping and walking. Usual Suspects. Okay, you realize in the last scene in the movie, where Kevin Costner's character goes from doing this limp to where he's just walking space. And it's like, oh, my God, like, that's the guy. And like it was at that moment where I'm like, Oh, my God, I
Scott Benner 13:09
think I've diabetes just like that. You know, like, I'm Kaiser. So say, Kaiser shows. And I have diabetes.
Jon Marks 13:17
He's not very Yeah, I wasn't verbal. Kim. I was actually Yes. I'm just kind of. Yeah,
Scott Benner 13:21
so that's so that really, without any background? Did you use the internet or just the thirst thing drove you to diabetes in your mind?
Jon Marks 13:28
I mean, this was 2002. So I didn't, I probably had a flip phone at the time, right? So I just like and I remember saying it to my mom, when I got up there. And she goes, you don't have diabetes stop. And I'm like, Well, what the hell's going on? And but she looked at me, she said, You look like a drug addict. You really shouldn't waste probably six or 700 for, you know, three, four or five days. Yeah. So you know, went to the doctor Bang 720 you got to go to the hospital.
Scott Benner 13:54
So you're about two years prior to my daughter who was diagnosed in August 2000 excuse me four years 2006 when she was two years old. So you were just slightly ahead of the curve of technology too. Right. So what did you start with to manage?
Jon Marks 14:10
So here's the here's the kicker when I said I had two part time jobs, and then I one part time job, I had no health insurance. So just going to the hospital and then putting me in intensive care, because they were worried that there was probably going to be problems with my organs because my blood sugar was so high. So I don't have insurance in there. And you know, that's like staring down the barrel of a shotgun where it's like, oh, my God, what am I going to do? And luckily, you know, my parents aren't wealthy by it by any stretch, but I grew up in a middle class neighborhood. I was living on my own and I had an apartment of my own, but I knew at least that they could give me some some support as I needed. I started off with a vibe with a vial of long lasting in a vial is short lasting in needles, and in a one and a one touch a little meter. A meter. Yeah. And that's how I and that's how I did it.
Scott Benner 15:00
I try to explain to the people who listen to the show I'm like you they gave me a vile and a handful of needles and this little meter that look like it came out of a bubblegum machine and like you're gonna take care of your kid. And you know compared to now it's it's barbaric. And compared to even 10 years prior to that, it was the most amazing thing that ever existed. So it's interesting how it leaps forward so much. So you find on the pod when
Jon Marks 15:25
I'm so been married six years, seven years ago, and and you know, what's it like? I don't, I don't know why. I didn't get on a pump. I had I lived in Hawaii for a couple of years. I had, you know, gave started my radio career and my diabetes was not managed. Well. I didn't test my sugar. Well, I didn't test it often. I I wasn't a big sweets eater. So it's not like that I was eating cakes and cookies and all that stuff right there. But if you're not testing your sugar multiple times a day, you're never going to be regulated properly. Right. So I had for a number of years. That's that's how I lived I had multiple times where I bottomed out and I woke up in the back of an ambulance. You know, I I just always felt like especially when you first get diabetes, you feel like because you're still in the honeymoon phase. You always feel like that you're going to be able to go to get something right like you feel low. I can I'll be able to go to get to the store and get an arm Vegas. Yeah. Until the first time where it doesn't happen. And then happened in Center City, Philadelphia, I was going to deposit my my check from my job, and boom, straight down, right. And I woke up in the back of an ambulance. And the first thing I remember him saying, I didn't know if you're gonna make it or not. Wow. Yeah, so it's scary. But I mean, that's how I look for a long time. So
Scott Benner 16:42
I don't want to put words in your mouth. But I've heard adults. So you're in a really interesting space. I've talked to so many people, like, diagnosed as an adult, but not a real adult, if you know what I mean. Like, you know, just right and, and just try to ignore it. Like, it'll be okay. But do you have? Do you have any idea how many people tell me in that age range, they meet someone where they it ends up being they take better care of themselves? Because of someone else? Or for someone else? Did you have that? Like, like, were you doing it for you? Or did you do it because you met a woman? Or do you know what I mean?
Unknown Speaker 17:14
Um,
Jon Marks 17:15
I think I just I realized that doing what I was going to do, what I was doing, how he was managing my diabetes wasn't going to work. And I think it was when I went back to this, this was when it was I went back to seeing seeing an endocrinologist on a regular basis, right? When a couple of years where I would go, and then I wouldn't go for a year. And then when I needed prescriptions refilled. And they're like, you can't get your prescriptions refilled, unless we see you in the office. And I would have to go again, I think it was when I finally started getting regular a one C and it and I saw what, how how I was managing my diabetes, which was, you know, Not good, not terrible. I was trying. But it's very difficult when you're just using a meter. And you're just using a bile and a needle. It's very difficult. So that's when the doctor because I hadn't been a regular, bad, anything good. I think on a doctor on a regular basis. They said, Well, what about the pump? And I said, Sure, let's do it. But it really was the Dexcom that saved me. I could take injections right now. The Dexcom is the lifesaver. I mean, this is what's totally changed my life is being able to see what my blood sugar is at any moment and see what food does to my blood sugar so I can learn from that.
Scott Benner 18:32
Right so that's been the game changer fine tuning issues, then you can do with it. So it's it's interesting. I was talking to somebody yesterday. And he said that pump used to be this thing where if you were just really not on top of things at all, they slap a pump on you thinking well at least you're getting basil and so on we can we can know that's happening. And maybe you'll push some buttons once in a while when you eat and we'll get lucky and you'll Bolus once in a while, which makes it all nice not to get poked and all that stuff's great. It's great to be able to adjust you know Temp Basal rates and extended bonuses and things like that. But you're right once you can see the data in real time, it's eye opening in a way that's it's impossible to describe if you've done it to somebody who's never seen it before.
Jon Marks 19:11
Yeah, and you can't without seeing that you don't really know you you can test your sugar after an hour and you know what it is but you don't know how long it took to get to there and that was another thing with me was the taking too much insulin too soon, eating something that has carbs but they're slow acting carbs and then not realizing that's not going to hit me for two and a half or three hours and then I'm low and then I'm eating to solve that low but then my sugars getting high so then I'm waking up with a 350 you know, so the Dexcom for anybody out there that doesn't have a Dexcom get a Dexcom or get something like a Dexcom because it is is a life changer.
Scott Benner 19:48
I would tell you that I'm absolutely Arden. Like we love Omnipod we really do. Arden's had it since she was four, maybe, but you're right. If you made me choose, I'd have to take Seeing the data over the ease of pumping. If you made me pick just one like that, you know, it's a false choice for us. But that would be the way to go. I have a question about prior to all that you're bouncing around a lot. So were you the kind of person who was low so much that it counterbalanced the highest so you're a once he looked like it was reasonably okay in the sevens or were you more of I'm trying my best. Like I'm more in like the mid eights.
I don't know if I can say it better than it's been said already today. But the Dexcom je six continuous glucose monitor is an absolute must in your life with insulin. If you have type one or type two diabetes, you need to see what your insulin is doing, what impact it's having on your blood sugar, and how is the food you're eating, impacting all of it. Think about that, think about being able to see food, go into your mouth, go to your blood sugar and cause a rise. But you can see it happen in real time. And allows you to make a decision for next time, right? I Pre-Bolus my meal this time I did 15 minutes. But I started to get a rise before the insulin really kicked in. Maybe if I just adjusted my Pre-Bolus a little bit. I could stop that rise. Maybe I just need a little more insulin a little less, a little sooner, a little later. How do you figure that out? You figure that out with the information that comes back from the Dexcom g six continuous glucose monitor dexcom.com forward slash juice box links in your show notes. Links at Juicebox Podcast comm Get yourself a Dexcom g six, find out what your blood sugar's doing. Do you ever go to sleep with a blood sugar of 95 and wake up with a blood sugar of 250? Can you imagine if you could see exactly what happened overnight? When does your blood sugar start to rise overnight? When does it stop? Imagine now that you just set some basil rates that impact those rises. So you go to sleep at your 95 blood sugar, the rise is going to happen at 2am. But you're ahead of it. And you've changed your basal rate at 1am to get ready for that rise it to the rise never happens. And you wake up with that same blood sugar that you went to sleep with. Would that be cool? You can do it dexcom.com forward slash juicebox. I'm not even bothering to tell you that you can share your data with up to 10 followers if you want. That means your wife, your sister, your school nurse, anybody could see what your blood sugar's doing, if you want them to. Alright, while you're on the internet looking for that Dexcom Don't forget to get yourself a demo of the Omni pod or a trial you can get a trial or a demo two different things. So you can get a free no obligation demo of a non working on the pod just so you can wear it to see what you think you'd like banging around the house with it. And so you know, John's gonna say later he wears it on his arm. You can see if that works for you. Or you can dive in a little farther and get yourself if you're eligible for a free 30 day trial of the Omnipod dash use the dash for 30 days for the freeze. You could do that. If you're eligible. Go find out at my Omni pod comm forward slash juice box we're talking about insulin pumping. We're talking about having control over your basil, your Temp Basal, your boluses you can extend your boluses there's all sorts of things you can do and I haven't even told you yet that it's tubeless so you're not connected to a device means you can jump in the shower without taking you off your pump. I just literally five minutes ago saw a story online. Someone tried to figure out why getting into a tub made their blood sugar come up. And after all this consternation and talking you know what the answer was they took off their tube insulin pump to get into the water, taking away their insulin and allowing their blood sugar to rise. But then on the pod. You can jump in the water and keep on that on the potty. It is tubeless it is waterproof. And it is wonderful. My on the pod.com forward slash juice box dexcom.com forward slash juice box of course don't forget the T one D exchange T one d exchange.org Ford slash juice box. Check them out support the show hit the links. Thank you back to john.
Jon Marks 24:34
Definitely highs and lows highs and lows highs and lows. eights. Yeah,
Scott Benner 24:38
yeah, definitely. But you passed out. You passed out a number of times though.
Jon Marks 24:42
Christmas. Christmas morning. When I guess though this was back when I was I was definitely living in my parents house. So I lived on my own for a while and then when you know coming back from living in Hawaii, I was there for a year or two and then I moved out but I remember it was Christmas. This morning the insulin that I was using you would have to take a half hour before eating and I took the shot of what we were going to have for for Christmas morning and then I fell back asleep and I guess breakfast got delayed I came downstairs only thing I remember is waking up on the floor with with with an ambulance in my neighborhood on Christmas morning which made all of my neighbors and people that I know in the area wonder what happened. So yeah, that was one of my times.
Scott Benner 25:28
Wow. And now you said you have a couple of kids do you know about trial net? Have you wondered if they've got like antibodies that marker type one or do you not think about that too
Jon Marks 25:39
much? I honestly don't think I not that you don't think about it? Because I mean obviously you do and it's something you worry about. I have I have baby number three coming. God willing in in July. But thank you but but I haven't No, I haven't looked into it. And I'd be more interested in I'd be more interested in information.
Scott Benner 25:59
Yeah, there's a woman named Carla Greenbaum was on recently she runs trial net, they'll send you out a kit for free you do a little thing at home send it back to them they'll tell you if you have any the antibody markers. And actually there was a gentleman on just the other day, who's just about ready to have his company's about to have a drug come out of trials with the FDA and they're seeing that if you have the markers they give you this drug it's an infusion. I think you get it. Got I hope I'm remembering this right maybe like once a day for like 12 days in a row and then you're done and it can hold off the onset for years. Wow, really fascinating stuff. So yeah, it's called trial that when we're done, I'll send you the information so you can you can have it. Hey, do you know um, you know, Sam fold has type one.
Jon Marks 26:44
Yes, it is. Um, he's a he's a he's a coach for the or he's in the front office for the Phillies. Now
Scott Benner 26:51
he's I guess well, Dombroski is, is Dombrowski, not the GM? I think he
Jon Marks 26:57
is like he's I think he's like the president of baseball operations. And then they bring somebody else in who has the general manager title.
Scott Benner 27:05
And that's Sam. Right? Yeah, yeah, Sam's got that Sam's got the GM has actually been on the show a couple of times. He's really just a delightfully nice guy just then if you ever bump into him, he's got like this great camp he does for kids with type one every year, and he's just a really, genuinely decent person. So I just figured you might bump into him at some point or another. Okay, so I have to ask you, I'm a huge howard stern fan. I have been all my life. And I always imagine that Howard would make up fights with other disc jockeys just to make on air stuff, but fights with sports, radio disc jockeys is real, isn't it? Well, Scott,
Jon Marks 27:43
I like you grew up on howard stern from man from middle school when I knew I was shouldn't be listening to him because I wasn't old enough for that type of content, right? All the way up through. I don't have I don't subscribe to Sirius anymore. But whenever I get like, my wife just got a new car. So she's got the one year subscription. So I every time every time I need to go somewhere, I take her car so I can listen to the stern stuff. Um, I mean, so in Philly, there's two sports radio stations. Where I am a Wi Fi, which is the leader in in sports radio for forever. And then the other station, which is 97 five, the fanatic. That is where I started and where I worked up until, I guess it was 2017. I guess now Yeah. 2017. So I was very much the enemy or I considered Wi Fi enemy for a long time. And then I switched and I came over here for I mean, for the most part, we I get along with everybody. There. I still consider most of the people over there, my friends. Everybody's been great to me here. But I would say some of the older generation of sports talkers in this town, they have a that's kind of what's kind of what they grew up with, which was just hating everybody and each other the fighting. Yeah.
Scott Benner 29:01
Well, you know, it really is that idea that back then there was a finite amount of radio stations that were talking about the thing you did, and if somebody else was succeeding, you were failing. Now there's outlets for everything. You know, you can get your get your voice anywhere, almost amazing. And I think and I think stern kind of kind of set the bar for just a radio war, right?
Jon Marks 29:21
Like no matter who he was, who was trying to go up against them. It was first john dibella in Philly, who had the morning zoo, he had the top rated station or star top rated show here in the mornings. And when Howard got syndicated, the wy SP was like, Okay, he's the guy to beat. Yeah, we're gonna beat them and then that like that's just was was was what he was gonna do. He was gonna stop at nothing to beat whoever was in his way. You had man cow who was out in out in Chicago and you had some other people across the country across the country. But yeah, I mean, that was radio wars. That's what you did. And you saw a lot of people. Even up until recently, there was a there was a sports radio host here. Not too long ago that was applying to Howard Stern. And method of you know, radio war stop at nothing to win. And, you know, it's time to kind of change that stuff to do the Howard Stern stuff anymore
Scott Benner 30:07
doesn't work. Yeah, do you know I went to that dibella funeral, I must be much older than you. I just realized. We took the day off, and we went down and it's the down there. And I think it was on Market Street. And it was hilarious.
Jon Marks 30:22
You and a lot of other people. It's, it's amazing. It's amazing. Like, obviously, I'm constantly looking at ratings and everything else with with with our show and other shows or whatever. But the ratings that howard stern did, you'd more or less have 25% of the city, listening to Howard Stern, you'll never see ratings like that, again, I was gonna make one in four cars. This
Scott Benner 30:43
is an amazing statistic. It really is. And do you feel that like, I look, I have a podcast, I'm not on the radio. And I feel it constantly, like, make this good. Make it better make it interesting. Don't let there be lols. You know, like, do you have all those feelings? Like you have that reserve voice in your head? That's like cut this call off?
Jon Marks 31:04
I had that I have anxiety every day when I wake up? Because it it is what am I going to talk about today? Right? When you do a radio show, if you if you're doing a lot of interviews, then you can do a lot of interviews. And that's kind of like the preponderance of what you're doing on a show. That's not what we do. We do mostly talk of interviews. But for the most part, it's, we're talking we're discussing, we're debating. So it's been I mean, honestly, it's even when we've had great writing success, like, hey, you're the number one show for the last six months in Philadelphia, it's difficult to enjoy because I have to, we have to answer the bell every morning of you know, like, or in the afternoon. But that's what I'm thinking about. When I wake up. The first thing I think about when I wake up is what the hell am I going to talk about today?
Scott Benner 31:50
I think if you put two average people in front of a microphone, they could maybe go for two and a half minutes and then they wouldn't be able to go anymore.
Jon Marks 31:59
Well, I mean, it's gone. I think it's just like I knew from a very young age, like you were talking about being a Howard Stern Show, I started off in I used to tape howard stern on a cassette and then I would listen to it when I got home I would tape the dude back then was the WP morning show with with with with Angelo and Tony Bruno and more Gani. I would tape radio because I would have to go to school and I wanted to listen to it. So for me, I think it's just one of those things where I just like, it's what I've always wanted to do. And kind of it's cool being on on here right now. Because I didn't get involved in radio, I didn't really get my act together in life. Until I became diabetic. And I had no insurance, I had a part time job. I was just kind of like, living right, like, what am I doing with my life? And it really, it kicked my butt into being like, you know, what, what are you doing, dude, go out there and do something with your life. And that's what I mean. And that's what I've done since then.
Scott Benner 32:57
No kidding. I'll tell you the amount of people who tell me and I see it with my daughter as well, that being a witness having to be aware of your health is gives you a lot of clarity, and that some of the healthiest people I meet have type one diabetes, because they're so in tune with what's going on with their with them, their self inside, it's it's a view that most people don't have of themselves. And it feels like you saw it, and it wasn't going right. And at some point, you're like, I gotta fix this. And then that led you to pulling everything else. That's incredibly interesting.
Jon Marks 33:30
Yeah, it was like I always say that, that people that people that are trying to manage their diabetes, right, you really have to want it. You have to want it you have to be diligent, it's it gets tiring to do it. You can't do it five days a week and then take the weekends off. It's seven days a week 24 hours a day. Whether it's with me myself Scott with with you have in your daughter, just the the burden that that must put on your mind because a turn right, like I couldn't imagine that I would much rather deal with it myself. Because I know that I can deal with it myself. But I have a I have a friend whose dad is he's not type one. He's type two. And he's he's in his 60s. And he, we were swimming. I was over somebody's house. He was there. We were swimming. And he's asking me about the Dexcom because I actually keep them on. I keep the pump and the Dexcom on my arm. Because that's the best best place for me is on the back of my arm, upper arm. Yeah. Otherwise they tear him off or whatever, right? So that's where I have them. So I'm swimming. He's asking me about him. And I'm asking him about his diabetes. And he's, you know, he never doesn't ever test his blood sugars and everything else. And I told him, I said, Listen, if you get the Dexcom, like, you will know what your blood sugars are at all times. And you can adjust it. If he didn't, I gave him the information. He never did anything with it because he's just like, Oh, I'm fine. Don't worry about it. Well, like you can't have that you can't feel like that. I'm fine. Everything's gonna be fine. So it kind of when it's done. For me in life, which is that like to be in radio and to have, you know, moderate success and to be doing this on a local level and, and having some success here in Philadelphia, like I've, I've been kicked. So many times I've been told I can't do this so many times I've really, really, really had to watch it and work for it. And it's the same thing with with with keeping your sugar's down. Yeah.
Unknown Speaker 35:23
I mean, it is,
Scott Benner 35:25
well after you after you decide to do something like that you do recognize that other things are not as difficult as you think they are. Like, I find diabetes to be a major source of perspective for me, I there are things that prior to my daughter's diabetes, I would have thought were trouble or a problem or hard and now I don't look at those things the same way. It just I would I would be able to say to myself, I want to get something accomplished. I'll go do it. Nothing's as bad as my daughter's blood sugar being higher low to me. So I just
Jon Marks 35:54
felt like I heard you. I heard you say in a in a recent episode that that if your daughter's blood sugar's over 145 after you eat, you're like, inside, like, what did I do wrong? Did I not do this? Do not do that. And it's it's, um, I thought about it. And I said, well, man, like, if it's me, it's just like, Alright, well, I got to do better, but you wanted for your daughter. It's like you're, you're in charge. You're the one that it's trying to help her. It's,
Scott Benner 36:19
it does feel
Jon Marks 36:20
it really, it really puts life in perspective. And I'll tell you this, that that diabetic me is is a much more healthier person than non diabetic me.
Scott Benner 36:28
That's certainly something. Is your Does your wife have any involvement in your care? Or is that something you keep kind of separate?
Unknown Speaker 36:35
Um,
Unknown Speaker 36:37
I mean, No, she
Jon Marks 36:38
doesn't. She doesn't have it on her. She doesn't have it on her phone or anything like that. She She knows that I'm taking pretty, you know, pretty good care of myself now. But she's the one that pushed me before. She's the one that pushed me when I didn't have a pumper or a Dexcom. She pushed me saying like, well, how your sugars on my sugars are fine. Like how do you know? And she she was holding me accountable? Because they had it? I know if they were fine. I wasn't testing my sugar. Oh, no, they're fine. They're fine. Don't worry about it. I was just low, like, an hour ago, and I ate a granola bar. So I'm fine. Right? Yeah. So she was and she read before we got we got married to where it was like, I'd like to have this on before we get married. So like, so. We've been married almost seven years now. So that's
Scott Benner 37:21
how long it's been so fine to you was not passing out. Like I have a granola bar. I'm fine. Which meant I'm not gonna wake up in an ambulance.
Unknown Speaker 37:30
I yes. Yeah.
Unknown Speaker 37:32
Yes, that's
Jon Marks 37:33
that was fine with me. were like, Alright, maybe I'm a little bit high. But whatever.
Unknown Speaker 37:36
I mean, it Yeah,
Scott Benner 37:37
yeah, you're right. But you're in a completely different space now.
Unknown Speaker 37:40
Oh, absolutely.
Unknown Speaker 37:41
Yeah, absolutely
Jon Marks 37:42
my biggest my biggest issue right now with my blood sugar, because so I get off the air at six o'clock. Depending on traffic, it could be anywhere from 45 minutes to an hour getting home. So by the time I get out to the studio gets on my car, so I'm getting home, usually between seven and 715, we try to have the kids in bed by eight o'clock. So I am rushing home so I can eat and some stuffing my face eating trying to put the kids asleep. And I'm exhausted. So what I what now the biggest problem is because then I'm asleep by nine o'clock, my blood sugar's are still getting a little bit higher, whatever. So it's, it's, that's my biggest problem spot right now is I will I will wake up at like 11 o'clock to use the bathroom and my sugars will be higher than they should be.
Scott Benner 38:29
Okay. And you'll What will you do? Will you adjust basil rates for that? Or do you think your meal ratio in the evening is like, are you but like, how are we into this? Are you like do you do you know if I said to you, that if you have something with a lot of fat in it, that you'll see a rise from the fat a couple of hours later or that protein can make you you're into all that.
Unknown Speaker 38:50
Yeah, yeah, I
Jon Marks 38:50
mean, a lot of time. A lot of times it's it's just it's it's not properly doing extended Bolus. It's it's not taking enough because I worried like the classic me taking too much insulin because I don't want to be high and then I get low. And then I eat to make up for it. But it's two months at a meeting. So then the sugars back up. Well, let
Scott Benner 39:14
me pitch something to you go back to Episode 210 and start the diabetes pro tip series. It's with me and a friend of mine who also happens to have type one for she's coming up on 33 years now and she's a CD. And we talk through all of the management ideas. Like one one, there might be like 20 episodes of it at this point. And I'll tell you people listen to that and tell me boom they're a once he's come back in the fives in the low sixes no trouble. Yeah, just management ideas and just talk through simply so if you if Jesus, if you can get help from that, I think that would be amazing. Going back to earlier I have to tell you that I don't really say it on here very much. But that pressure about doing it every time I start talking to somebody and you know because You're doing it with me. I don't want anybody's notes. I don't like knowing what we're going to talk about. First, I tell people Introduce yourself, I'll ask you a question, we'll start talking. And for the first 20 minutes, I feel an incredible pressure to build a narrative that will be interesting and want you to, it will make you want to listen till the end. And once I hit those 20 minutes, I can hear a voice in my head, that's just like, don't, don't ask this up now. Like, now you did it like, now pull it through to the end, you know, like, make it work. And I don't I love doing this, I really do, I have to tell you, I am very much in the same area as you. I mean, we used to put 90 minute cassette tapes in like, and tape the stern show, and then run home 90 minutes later and put in another tape and do it again. And then you'd listen to the whole show later. And I think it's an amazing skill to be able to have conversations that are interactive, without you being with people and hold people's attention. I find it to be an incredible, kind of a magical thing to be able to do. So I got,
Jon Marks 41:04
yeah, it's cool. It's cool. I couldn't imagine doing anything else. Be honest.
Scott Benner 41:08
And I seriously like, so people come on, like there's all levels like people call in. And some people are terrific, right? They have a little bit of an agenda. They know how to get to it and everything. How do you stop yourself? When somebody kind of hymns at halls? They mean, how do you stop yourself from like, going to get to it? Like how do you?
Jon Marks 41:24
Well, it's actually it's a, it's a great question, because I don't, I listened to a lot of audio, just from around the country, I listened to some stations up in Boston, because I feel like it's a it's a similar market with a similar style of way that they're doing things. And there's one particular show where the guy literally will give you 10 seconds. And if you're not good after 10 seconds, bam, you're gone. And he comes off as a jerk, because that's kind of his personality. And, you know, especially when I started this show, which was back into the end of 2017. I was running phone callers a lot, a lot sooner than I do right now. That there's a there's a thought in the business that if you allow a color on for more than two minutes, you're going to have people tuning out. So I'd say that that two minutes is is kind of what you're shooting for. And if they're good, leave them on for a little bit longer. But I mean, you're right, if you knew what you were getting with every caller, then it'd be easy. But unfortunately, some callers are much better than others. So if you get the bad call, or that's kind of maybe had a little bit to drink that day, which we'll get from time to time, or somebody that's just not very good on the air. You got to try it you got to it's it's I feel like it's one thing that I can definitely be better at is command over your show and command over the calls to where someone stutters for a second, you don't want to come off as being a jerk. Right? You also can't let him just continue to sound bad
Scott Benner 42:55
because they that car radio and you're talking are you talking mostly to people in cars? Is that the vibe?
Jon Marks 43:00
Um, you know, it's crazy, because you and I started listening to Sports Radio when there wasn't cell phones. So people were actually calling from landline phones. Yeah. I'd say that, that you probably get about 60% of people that are that are in the car driving tour.
Scott Benner 43:15
I think it's the whole thing is amazing. When would you spend the last couple of minutes talking a little bit of sports with me? Sure. All right. I What? I don't understand. Carson Wentz wanted out? Is that what ended up being the truth.
Jon Marks 43:31
Yeah, yeah. So I guess after he was benched, he decided that Nope, I'm out. And from that point on, he was like, one of those things where like, you know, when you're done, and maybe other people don't realize, you know, where you're done, but whatever, for whatever reason, at that moment, he decided he wanted out. So
Scott Benner 43:51
that's so then a lot of what you hear then through the media is just people saving face or trying to set things up in their favor going forward. It's what you do paying attention to sports a occurred to me while I was thinking about yesterday, that it's so similar to political conversation, in that, like, there's the truth. For one side, there's the truth for the other side. And there's somebody trying to figure out what it is like, there's what the team says it's what the players say, it's what the business says. And then there's sports and then you got to have to sift through it. And what's actually true, right
Jon Marks 44:23
because, because it just because a sports team leaks information to a media member or an agent for a player leaks information to a media member, if they're not given a lie detector test before they give that information to the to the media. So you're right, you're doing a lot of I think you're you're you're looking at the available information, you're deciding, okay, why is that being put out there and then you're trying to figure out what's true and what's not. And I think it's pretty safe to say that that last year was a really crappy year for the Philadelphia Eagles and that Carson Wentz for whatever reason. It was better for him to play elsewhere. Right?
Scott Benner 45:02
So is your is the content of the day for your show? Is it driven by you trying to get to the bottom of something or you knowing what the listeners want to talk about what the callers want to bring up?
Unknown Speaker 45:15
Um, alright, so
Jon Marks 45:16
So today is a Today's a Tuesday and normally this time of year, we are in spring training, down in Clearwater, Florida. We were actually down there last year, right? When, like, everything kind of hit the fan. Yeah, where we were there. We were down there. And they're like, okay, you can't interview players anymore. So it's like, oh, well, okay. So we, we, we were able to like tape a couple interviews, but we had to be a certain amount of time away, or feet away. Nobody had masks or anything. I think that people just started using hand sanitizer. You know, like, and it was all sold out. So I couldn't get in these hand sanitizer to take down there. We actually had my partner bought a bottle of rubbing alcohol, and he was pouring rubbing alcohol in his hands to sanitize. But so like, that's what we're doing today. We're not going down to Florida. But we're almost pretending we're in Florida today. And we're having a bunch of Phillies guests that are on. So like, I have to decide and we have to decide is the show. What is the jumping off point? If you tune in at two o'clock? What can we say? What can we do that's going to say cool, or it's going to be like Wow, good opinion, or it's going to get your attention to continue to, to remain tuning in. So you're more or less throwing your fastball, you're throwing your best pitch to try to catch people you're deciding what is the most important topic of the day? What is most interesting. So we're going to do a Phillies topic today. And I think it's going to be is this play off for bus like did the Phillies, the fourth highest payroll in baseball? Do we expect them to make the playoffs? Because I don't think a lot of people do. Normally it could be an Eagles conversation. But really, it's kind of reading the room, which is your audience, which is sports fans and deciding what is most meaningful and interesting to them at two o'clock.
Unknown Speaker 47:02
And it's you know, it's
Jon Marks 47:03
different. I've got I've worked. I've worked mornings. I've worked mid days. I've worked afternoon drive. I've worked nights, and each different time slot or day part is different. When you come in on at six o'clock in the morning. You're starting the day for the station. Right by two o'clock. What a topic. They may have been hot at six o'clock could be picked over two o'clock. Yeah. So I mean, it's interesting, but I think I think you get what you're what you're trying to do. Right trying to well done. Interesting, but
Scott Benner 47:30
it's not. It's interesting. It's work. I would say it's problematic for you. Because if the morning eats up that that topic, but it's still a reverent a relevant topic of the day, but then you almost have to kind of gloss over it and find the next thing that's most interesting and make it interesting,
Jon Marks 47:47
right? No, you're right. And, and it's, I mean, honestly, afternoon drives my least favorite day parts that I've worked just because I'm not getting home to a little bit later. And I'm not like I'm not a sleeping guy. I'm up early, and I'm ready to go early in the morning. But like it can be picked over sometimes. But like you said, sometimes you can take an idea, refine it and make it better. Yeah. I mean, it just it depends every day is different.
Scott Benner 48:13
Do you think that what you do has impact on players and teams? Like do you think you're not that you have sway over them? But do you think that they listen and that they make decisions based off what they think of is as how people feel?
Jon Marks 48:29
Me personally? No, the radio station and the sports culture in general. Absolutely. Yeah,
Unknown Speaker 48:35
absolutely. There
Jon Marks 48:36
was a Barrett Brooks, who was an Eagles player back in the 90s alignment offensive lineman offensive lineman now does a he does a radio show that's, that's it's on an am station and it's national on a national network. He he had told a story, I guess it's two weeks ago now where they used to talk about in the locker room that the my station Wi Fi, that the Eagles used to listen to Wi Fi. And they would make decisions based on what the hosts and what the callers were saying. So I mean, if nothing else, it puts pressure on the teams to do things and like if Wi Fi wasn't around, and if this city didn't have it as an outlet. I don't know if Carson Wentz is gone. I don't know if he feels the pressure and the stress and the heat that he otherwise probably wouldn't have felt in a different market
Scott Benner 49:26
because they have they don't have the ability to do what the rest of us in the world have to do. Like we live in our lives you don't like right now if my neighbor hates me, he's 60 feet away from me talking crap about me. I have no idea I would never know. There'd be no way for him to like for me to have any impact from that law. But when you can hear people talking 24 hours a day about the decisions you make. I bet you it does really weigh on you and it is different around here right like if you if you picked up and went and did that sports talk and you know in the middle of the country somewhere you wouldn't want to have The same vibe and then it wouldn't have the same impact on the players.
Jon Marks 50:03
Yeah, and you can't do it right, I'll listen to we have a we have a station out in San Diego, I'll listen to their their morning show that I can get driving in because of the time difference. And they're very funny. There. You're not doing the same kind of sports talk in San Diego or in Los Angeles or in St. Louis, or in Texas that you're doing in the northeast, because we're I mean, we're,
Unknown Speaker 50:25
we're crazy. Yeah.
Scott Benner 50:26
mahomes isn't worried that somebody is going to bad mouth him on the radio after he throws a ball on the ground. Now, there's
Jon Marks 50:31
not going to be a host that's going to decide that he's he's really not a good player, and we're all crazy, probably not.
Scott Benner 50:37
So just your opinion, was once a good quarterback. And the injury just shut him off.
Jon Marks 50:43
I think that he has he gets in his own head. And last year when the offensive line was was poor, that instead of looking down the field, he was constantly worried about the rush. And that was his biggest problem. He just wasn't seeing the field Well, next year with a with a different with a different team and a better team and a better offensive line. I think he's going to be good. But I also believe that at some point he will get back in his head again. And that's something that you're always going to be able to deal with, you're going to have to deal with if you of course and mentally, he can be weak sometimes
Scott Benner 51:15
I was amazed for a size how well he could escape and then when he lost that tool, then he just suddenly started looking like please don't hit me. Like Yeah, I don't want to get run over back here over and over which I can't blame him for but and so Okay, so let me ask you if someone asked you Philly's question I'll let you go because I know you've a big day. Would you draft up would you draft a quarterback this year? The Eagles Yes, I
Jon Marks 51:40
knew it was coming okay. I'm like it's it's a difficult difficult question to answer because we're not evaluating the quarterbacks right like I'm not a I'm a football fan. I'm not I'm not an expert right now. I'm afraid that the Eagles they're not experts either. That's been part of their problem. But if they see a quarterback and they say because here's what I think the Eagles think about the Eagles current quarterback Jalen hertz, I think they like them but they realize he has limitations. And Can he really be a good enough quarterback to win a Super Bowl? I don't know if he can. So if there's an obvious upgrade and you see a quarterback and you're like damn this guy's good then I think he dropped them
Scott Benner 52:16
is there one out there in your mind?
Jon Marks 52:18
I here's the here's the problem. The top four quarterbacks might go to top four in the draft so if the Eagles are drafting at six they may not get together you're now you're looking at the fifth best quarterback and there's a big drop off. So the odds are Unless Unless they're able to trade up and get a guy that there won't be a guy there that they like
Scott Benner 52:33
so then you take the tight end
Unknown Speaker 52:36
you could he might be gone
Jon Marks 52:40
in going fifth in the most recent mock draft Okay, so now you're looking at a wide receiver or an offensive lineman it's very fluid it'll be it's it's it'll be fascinating to see what happens when the draft actually so this
Scott Benner 52:51
is a rebuild for the Eagles then.
Jon Marks 52:54
You know what, Scott? I don't think it is no, I don't I don't I don't think that they view it as a rebuild. I think they're they're viewing it as we need to make sure we get a quarterback. And if it's not this year, then you're gonna find out how good Jalen hertz really is.
Scott Benner 53:07
I don't know. It seems like I don't I I'm so accustomed to the football that I grew up with, which was there were 11 men on defense who were going to try to kill you and the 11 men on offense, we're going to try to kick to field goals and we were going to win sex. Like that's changed a little bit since then I tried to explain to my son I was like, there was a game it was a Monday night game, the Oilers were playing the Eagles, and by halftime, the oiler stop sending receivers over the middle of the field because they were running out of them. House a pain gate was the main one West Hopkins broke a man's nose I think Ernest Givens knows. And I just said nobody, like football just doesn't occur that way anymore. And my son's 21 he like he doesn't he just thinks it's a lot of really rich guys at score like 50 points by having a catch so
Jon Marks 53:55
well. And back then you could hit people in the head. Right? You can hit them late. You're playing on concrete most of the time and with astroturf. Yeah. I mean, it's it's safer now, which is better, but it's man football was different. back then.
Scott Benner 54:08
One time Andre waters tackled Emmitt Smith by running at the line diving on the ground, sliding across the astroturf and hitting them in the ankles. It's ridiculous. Yeah, they're playing on a concrete slip and slide. Okay. So the Phillies, and I'm gonna let you go after that. I were huge baseball fans. My son plays in college like there's baseball's been going around by house forever and ever. Is it the pitching is it just is it just the kingery didn't come along right like because bombs find on the corner. You find yourself looking at Hoskins wishing you had the guy that they like go to the Indians instead. Like it's just I gregorious is is great, is great for his age and he might be great. Not for his age. like where's the disconnect?
Jon Marks 54:58
I think I think what you have With this team is you have you remember that before the Phillies got really good and Kyla came in and Howard and Rollins and chase Utley and victory know before that team came about you had a bunch of good teams that weren't good enough, right? Well, I want 86 games two years in a row the way teams and he was the GM. Yeah, good, but they weren't good enough. And I worry that this team is good, but not good enough. And they're spending a lot of money. So it's not like you say, well spend, spend, spend, spend spend. I just don't like I just don't think they have enough good young players up right now. Right. like boom is raised a real deal. I love both, but who else? I don't want that. What happened with Calgary?
Scott Benner 55:43
Yeah, right. No.
Jon Marks 55:44
And you're hearing you're hearing sports, right? You're hearing Sports Radio Phillies fan talking right now? Because it's so frustrating because they had an opportunity. I just don't think they have enough good young players to supplement the roster. You needed like out Aaron Nolan. We're actually going to have him on our show today. Aaron, Noah is really good. I don't think he's good enough to be an ace. Right? You're missing a starting pitcher. Can Spencer Howard be that guy was kind of disappointing last year, right? They just need better younger players,
Scott Benner 56:09
right? There's somebody that people have to pop at the right time. It can't just be one of them. It has to be more than one pour. I have to tell you like just being the father of a baseball player. I watched Kangri walk out of the batter's box the other day, and I would have hugged him if I was near him. Like he I just he's had a look on his face like I don't understand like why I don't see the ball. Like it just you're heartbroken because he Scott all you mean, these guys appear to have all the tools and and that really brings me to my last question, right? Which is, How hard is it to be critical of people who are the best 3000 people in the world at something? Does that never seem ridiculous to you? Like Scott kingery is one of the best baseball players on the planet. He's just not in the top half a percent. You know what I mean? Like that's a weird. I don't know does Does that ever occur to you? I don't want to mess you up. Maybe you'll be like, Yeah, why are we picking on?
Jon Marks 57:01
it? No, it No, it never occurs to me. What's crazy is and you said your your son plays college baseball. To make it to double A in baseball is such a huge accomplishment. Right? It's a double A, it's something you have to be so good at baseball, even to be a double A player not not to mention a major leaguer in Scott kingery was a second round draft pick. So but honestly, it doesn't ever occur to me, like I to do this job and to be successful in this job. At least in this city. You can't, you can't worry about criticizing somebody, right? Like, if Scott kingery can't play and I don't think he can play then I'm gonna have to say I don't think Scott kingery can play right like with Jalen hertz, the Eagles quarterback yesterday I'd said I just don't think he's going to be good enough to really count and the matter, right. And these, I think these players today, they're wired so differently. They don't listen to sports radio, and they'd be crazy. If they did. They're looking at social media. And that's where they're getting their information from. I've never even thought, here's here's, I've been doing a radio show with the Eagles defensive end, Brandon Graham on Monday nights for an hour since the Superbowl year, right. And he's the one guy that I won't criticize, because we have a personal relationship. And that's, that's really
Unknown Speaker 58:20
about it. You know,
Jon Marks 58:21
I try to keep my distance from people normally. So not to worry about things like that.
Scott Benner 58:24
Brandon's got an old school vibe about him. I used to tell my son that I thought that if he wanted to Reggie white could have gotten to the quarterback on every play, but he knew when he didn't have to. And right Brandon knows when to when it has to happen. And does it like come hell or high water? It's um, it's really fascinating even as he gets older, like, it's, you know, it's not every game but my God, like when you need that guy to to disrupt what's happening. He's doing it. It's, it's like he I always felt like he understood the game on a different level.
Jon Marks 58:55
And with him, because like, me being a dad and having two young kids he has, he has two young children as well. On a personal level. That's where it that's where it gets me I mean, I see people online on social media that are listeners and the people that that I connect the most with our young parents like me. So when it's on a personal level, Scott it's difficult not to feel the personal
Scott Benner 59:20
relation so you can't get to know these guys because it'll just it'll mess you up.
Unknown Speaker 59:24
Yeah, I
Jon Marks 59:25
mean, if you're doing a different type of show, like like in Philly, you have the precedent Steve show, which is in the mornings, which is the closest thing to Howard that Howard that they've had since howard stern as far as kind of like a ratings juggernaut. Like they're on a rock radio station so they that they want the personal relationships with the players right like that's they want that those people come in and it's difficult to do in my position. Yeah,
Scott Benner 59:46
no kidding. That's a very it's a it's amazing. I think of it as a as a real art form. Honestly, it's a it's fascinating to see somebody take a two minute conversation, like I said, make it cogent. Make it interesting. Move into Something else. And somehow when you get to the end of the hour, you feel like the hour was about the thing. And it wasn't these small and then you guys just very effortlessly go off into, you know, some conversation of your own and bringing in your own opinions, you do a terrific job. So if anybody's local I, and like you said radio.com that people get to listen anywhere, right?
Jon Marks 1:00:19
Anywhere. Yes, the radio.com app, it's Wi Fi in Philadelphia, but you can listen to so many stations from not just entercom stations, but also some other stations as well. So you can listen to whatever you want, wherever you want. I use it to listen to people all over the country as well. So that's really amazing.
Scott Benner 1:00:35
Listen, when I was growing up people you didn't like teams that weren't within 50 miles of your house. So I i I'm even fascinated by that. That there are people in Texas listen to the Eagles talk radios, as
Jon Marks 1:00:46
I let you know when I I love to listen to after the Cowboys have a a bad loss. I love to listen to the cowboy station The next morning, to hear them melt down in anger. It's amazing. It just makes you happy. So as a guy that grew
Unknown Speaker 1:01:01
up in Philly, though, I would imagine
Unknown Speaker 1:01:04
getting this guy if I can mention one of the things
Jon Marks 1:01:06
before we wrap this up. And since we talked a lot a lot about me being on the radio. I recently so we're we're our studio is we're looking out on the school river in downtown Philadelphia, right by 30th Street station where you can you know, it's like kind of the hub of getting the New York or going down to DC in the on the transit line and track and whatever else. And probably a couple months ago now, we had somebody that jumped off the bridge here down into the school committed suicide. Wow. And it there had been another one a week or so before that. And I knew at that time because I I had been feeling some anxiety of kind of being bottled up with the pandemic and not being able to go anywhere. And very innocently, I had said on the air. I said, Listen, you know, I'm feeling it, too. I'm feeling the depression. I know that it's difficult out there right now with losing jobs and everything else. So please, before you do something like that, email me, direct messaged me on on on Instagram and Twitter, like reach out to a family member called the suicide hotline like, don't do that. I understand. Like, I've dealt with depression before. And Scott, you wouldn't believe how many people reached out to me just to say thank you. You talk about impact. And it's what made me think about it. And it gets me emotional. Yeah. But the the impact that I had, just by saying that a couple of people reached out to me that were in really, really bad, bad places. One was homeless, living out of his car, listening to the station. But like that, to me, that meant more to me than anything I've ever said about sports on the air and the almost 20 years that I've been doing this. So the little things you don't realize the impact that you can make, just by letting people know like, Hey, listen, I'm there to, we're all there. And it's okay. Right.
Scott Benner 1:03:03
Now, I appreciate that. I've, I've had similar experiences with the podcast, and you really can't, you can't undervalue how much just knowing someone else is feeling the same is it can can, can bolster someone, and then giving them the opportunity just to have some sort of a connection is is a huge difference maker. Good for you. That's really something is that something you think you might get more involved in?
Jon Marks 1:03:28
Um, you know, it's there's so many different things that I want to get involved with. And it's like, with my show, right now, we really need to like I would like to have kind of a cause that we raise money for every year. And I had a I had a friend that that committed suicide, right before the Eagles won the Super Bowl, so 2017, because I remember his girlfriend and some friends went to his grave and put his Eagles jersey on the grave. And it's one of those things where you're like, I should like not that you blame yourself. But in hindsight, you're like, I can see that he was really, he was a really, you know, like, emotional and upset person.
Scott Benner 1:04:09
Yeah, you don't realize it in the moment or you don't stop the look, I guess is the bigger point like it, it feels like, especially now whenever, I mean, I've had these feelings where I work out of my house, and my family's here and everything. And there are times I'm just like, oh my god, I'm just staring at a wall. Like I there's like there's nothing else to do. I've done everything I'm supposed to do today. And there's still five hours left. You don't mean like it's a very strange feeling. Now, man, that's really That's lovely. Obviously, I hopefully you guys can can lean into that because it sounds like you had a big a big impact. Just saying it one time.
Jon Marks 1:04:43
Yep. Now, yes, absolutely. So my way it would be it'd be a good cause to kind of get behind because I think everybody can relate and people so many people have been touched or have went through whether it's they've dealt with somebody in their family with suicide or just, we don't talk enough about mental illness. No, we don't. We don't We should we should talk more about it. Absolutely.
Scott Benner 1:05:01
JOHN, thank you so much for doing this.
Huge thanks to john. Don't forget to check him out on that radio.com app or at 94 WIP if you're in the Philadelphia area. Thanks also to Dexcom and Omni pod for sponsoring this episode of the Juicebox Podcast. Find out more about that Dexcom G6 continuous glucose monitor at dexcom.com/juicebox and check out those trials and those demos of the Omnipod at myOmnipod.com/juicebox you may be eligible for a 30 day free trial of the Omni pod dash. And of course, adding your information to the T one D exchange helps everyone living with Type One Diabetes. If you or someone you love has type one diabetes, and you're a US citizen head to T one d exchange.org. forward slash juicebox. JOHN caught me by surprise there at the end, but I want to add the National Suicide Prevention Lifeline to this episode. Help is available call 1-800-273-8255 or go to suicide preventionlifeline.org
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#456 So Many Issues
This is a story of resilience
Caitlin's daughter has type 1 diabetes and much more.
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or their favorite podcast app.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:10
Hello, everyone, and welcome to Episode 456 of the Juicebox Podcast. Yes, that's right. Episode 456 is here for your pleasure. Today we speak with Caitlin. I don't want to tell you too much about this because the notes I made for this show just said, Let me find it for you real quick. Like I make a little note for myself after I do the Edit, it said Caitlin. edited, meaning I'm done with it. So many issues. Please remember while you're listening to those issues that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, please always consult a physician before making any changes to your health care plan, or becoming bold with insulin.
This show is sponsored today by the glucagon that my daughter carries g vo hypo Penn Find out more at Gvokeglucagon.com/juicebox. This episode is also sponsored by the Contour Next One blood glucose meter. And you can find out more about that meter and much much more at ContourNextone.com/juicebox. And please don't forget to check out the T one D exchange T one d exchange.org. forward slash juice box. I use the word more. I almost said more. I use the word more and more than I wanted to while I was talking about the Contour Next One, but it's a really great meter. So don't let my horrible alliteration stop you from going to Contour Next one.com forward slash juicebox.
Caitlin 2:14
My name is Cate. And I'm the mother of three kids. My oldest of whom is type one diabetic, amongst other things, but I don't really know what else to say I'm you know, typical busy mom in this super crazy time trying to, you know, figure out how to keep everyone healthy and alive.
Scott Benner 2:35
That seems like all of our lives pretty much.
Unknown Speaker 2:37
Yeah, pretty much. Hi, I'm
Scott Benner 2:38
Caitlin. And I'm just like all of you.
Caitlin 2:41
Yeah, exactly. I mean, I don't really know, I listened to the podcast, and I wasn't. I kind of felt like intrigued and I wanted to talk to you because I mean, everyone's story is a little bit different. And I know in our case, it was it obviously flipped our world upside down. But it wasn't as much as I've heard from other parents because I guess we'd already had moments where our world was completely flipped upside down before. And I thought that's what was interesting to me. Okay. And I kind of wanted to share.
Scott Benner 3:16
Do you have any autoimmune issues or your your? Is it your husband or sperm donor? I don't know who that guy is. Is he? You know, are you married? I guess?
Caitlin 3:25
Yes. I'm married. Okay, gotcha. Almost, almost 12 years, or 13. I've lost track at this point after 10. It's like what?
Scott Benner 3:33
I got you a card for our anniversary. Wait, why?
Caitlin 3:37
I don't even think honestly, last last time. Last anniversary. It was like Happy anniversary. I made I made a cake.
Unknown Speaker 3:43
Did you That was nice.
Caitlin 3:45
And that was it? Because we were just both too tired to do anything.
Scott Benner 3:50
That's totally not romantic. My last anniversary was Hold on a second. I think 24 years. It was, by the way, it was two months ago. And I'm not I'm not 100 I guess definitely 24 years. Let's just say it was definitely 24 years. And my anniversary gift from my wife was I came downstairs and she said she goes hey, I'm like yeah, she goes. I really did want to get you a card. I said what's that just, I just didn't have time. I was like, Oh, can I actually found that to be sweet? I was like, Oh, she was considering getting a card out my sister. So the cake will disappear soon too. But But my point is, is that any Is there any autoimmune at all in the history of your family line? either side that you're aware of?
Caitlin 4:42
Um, I guess the only thing I know of is my sister who has a thyroid issues. Okay. And other than that, there was nothing.
Scott Benner 4:51
That's a yes. So was your sister. Do you know much about it? Was she hyper thyroid? hypo?
Caitlin 4:57
Yeah, and she was diagnosed in her Mid 20s,
Unknown Speaker 5:01
gotcha.
Scott Benner 5:03
any real issues managing it? Like, is she in a puddle on the floor somewhere? Are she
Caitlin 5:08
functioning? Well, she's functional. You know, she has two kids of her own. And I know that time was rough because your thyroid is just very different when you're pregnant. But other than that, I think, you know, a few adjustments here and there, but everything usually works. Okay.
Scott Benner 5:23
Well, she had two kids. So she really one of those kids, where she's incredibly careful, one of the other but
Caitlin 5:30
she wanted those kids she definitely did. She worked sounds like she worked for them. Like to I like to say that. You know, if I pushed her a bit, maybe,
Scott Benner 5:39
would you do you had a kid? And she's like, Oh, I didn't know we were in a race.
Caitlin 5:44
Well, you know, a little sibling rivalry. I like to joke about that. But no, I mean, I'm the younger one. Now by two and a half years, and I had all three of my kids before she had one. Oh, so maybe there was a little pressure, but I don't think it was that. I mean, you know, her husband was in school, and he wanted to finish school before starting a family. And I was just like, why would I wait?
Scott Benner 6:06
Well, you don't have to wait for her to go first. Do you
Caitlin 6:08
know exactly. Why would I wait, like I couldn't go to school and be pregnant? What are you talking about?
Unknown Speaker 6:13
Well, you did it. Congratulations.
Caitlin 6:16
But why? That's the question. Yeah.
Scott Benner 6:18
I mean, what did you really win? Honestly, you won this story. So here we go. So what was your daughter? Right? Yeah. And how old is she now?
Caitlin 6:31
She is 11. Almost 12.
Scott Benner 6:33
Okay. Real quick. Before we start, you have the thing Jenny has sometimes when you're making a point, you're tapping something, which is cool for you, but don't do it for me. Okay. I'm not tapping. You're not having anything you're not doing like though. No, no. Okay. All right. Well, then I'm having a stroke. Call 911. This is my address.
Caitlin 6:52
It might be my microphone. I tested it yesterday, but I don't think there's any noise on it.
Scott Benner 6:56
Or you're super clear. I'm sorry. It just felt like you were tapping something. But okay, but Jenny's gonna stay more still. I
Caitlin 7:01
was picking my fingernail. I'd have it.
Scott Benner 7:04
Wouldn't it be amazing if that was it? I cracked my knuckles the other day. And then when I went back to edit, it was there. It was just like, click like, like, give us a call. Geez, I'm gonna stop doing that.
Caitlin 7:14
range was sounds that the microphone picks up?
Unknown Speaker 7:16
Yeah, Yeah, no kidding. I'm sorry. There it was, again, you're not moving or anything's happening?
Unknown Speaker 7:22
No. All right.
Scott Benner 7:23
Okay. Don't worry about it. I'll stop thinking about it. We'll keep going. Because your kids got 8 million issues, and we need to get through all of them. We don't have enough time for me to be dilly dallying about other stuff. So what was the first thing to come up? And how old was she?
Caitlin 7:37
Well, the first thing was at four months old.
Scott Benner 7:41
Holy crap. You didn't choose your first one.
Caitlin 7:45
Yeah, I just waste any time on that one. I mean, they everyone likes to say I didn't waste any time, you know, getting married and having kids either. But no, I was feeding her her cereal. The first time I fed her the cereal that you know, just add water and you mix it and it's got whatever. And she was doing what any baby would do dribbling it mostly over her chin. But some of it got in her mouth, I assume. And after I fed her, I was cleaning her up because they make a total mess. And I was noticing like something was weird. And she was looking kind of read. And she wasn't happy. And like something in the back of my head said there's something wrong here. And you should maybe take her to the doctor. And I was like, No, no, I don't have to do that. There's nothing wrong. It's like it's just cereal. And like maybe five minutes later, she was getting cranky. And I'm like, No, what, you know, I'm going to be the Paranoid parent. First kid, I'm going to go to the ER, yeah. And I put her in the car and I drove to the ER. And that was like, maybe 10 minutes away from my house. And I picked her up by park the car, picked her up in my arms and walked into the emergency room. And as I walked in, she was what she was screaming at that point. And as I walked in, she went gray, pale and lost consciousness. Oh, kidding. And I went up to the nurse. I'm like, I know, I'm supposed to take a number but like there's something wrong. And she's like, what happened? I'm like, I fed her cereal. And now she's like, there's just like, that's not normal coming here and they call the code. Wow. And they rushed her into the back and stuck her with a ton of needles and put an IV in and I was like in total shock. And so that was my first like, brush with death moment with her.
Scott Benner 9:31
Your first one. Yeah, there gonna be more. Oh, there's more because that almost killed me. I just
Caitlin 9:38
Well, honestly, I thought like I was super paranoid. It ended up that she has an antibiotic allergy to dairy. Okay, and because the cereal had milk powder in it, that she had a reaction to it. And it was really bad. So I was given an epi pen for my four month old baby and told that here's a console for an allergist Don't give her anything with dairy in it, and you can go home.
Scott Benner 10:04
Wow. Okay, listen, let's take a short pause here because I don't do this often but let me just get a piece of clean paper on my notepad and put this off to the side where I can get to it because I have a feeling I'm gonna lose track. So hold on a second. Dairy for months. First almost died. Got it. All right now. You, you call your husband from the hospital or how does that go?
Caitlin 10:31
Well, he was there when I was feeding her. So he knew I was going
Scott Benner 10:35
Oh, did but did he come to the hospital?
Caitlin 10:37
No, he wasn't there that time. He is he watching sports going to work? Or? I'm not sure. Anyway, I called him I think he came right afterwards. Because you know, even when I left I'm like, I'm probably just being paranoid, but I'm gonna go take it just to be just to be sure. And I'm glad that I left at that moment. Because had that happened when I was in the car. I don't know if I would have arrived to the hospital with a baby that was alive in time. That's because her blood pressure went just it bottomed out. Wow, her her heart, like almost stopped basically. And, I mean, they brought her back really quickly. And it seemed like okay, that wasn't so bad. You know, she's fine now. I mean, I left like, that night from the hospital. They watched us for the whole day and put her on monitors and everything. And then once everything was finally sent her home, so it was like okay, no, I have an epi pen. I know how to use it. I used to teach first aid and CPR. So I know how to do this. I got this like no dairy. What's you know how hard to find?
Scott Benner 11:35
Yeah, by the way, I would have never had another baby If I was you. Like that would have been it. Um, but
Caitlin 11:40
actually, that did come into the conversation. Yeah, when we found another one. But the other one happens so fast.
Scott Benner 11:47
So you know what I'm really, you'll never know for sure. But I think after you left for the hospital, your husband immediately called his mother and said, Mom, I don't know what to do. I think Caitlin's crazy. She took the baby to the hospital because she gives the baby cereal. The Baby got a little red. And now she's gone. And yeah, he'll never admit that to you. If he ever had that thought in between the time you left for the hospital and when he found out what happened. But but that's well listen. Good for you. I mean, a lot of this podcast is talking about trusting your instincts. Right? So Exactly. You really did save her life. Do you hold that overhead? Now she's she's getting older.
Caitlin 12:27
Oh, I have a lot more to hold over her head. So that that's like the minor thing though.
Scott Benner 12:31
Okay, so seriously, so then you go home, you just avoid dairy. Does that go well? Or did you? I mean, did you run into more problems?
Caitlin 12:37
I mean, it's so hard at first because you don't realize like everything that has dairy in it. And it's not just like everyone's like, Oh, you know, you can't eat lactose? No, but it's the protein and dairy. And it's an everything like all those whey protein powder shakes, that's dairy powder, that's dairy protein. They put whey powder in hotdogs to increase the protein content. They put it as a preservative in some meats, like it's everywhere. So it was kind of like, wow, I have to go back to relearning how to read labels and calling companies and figuring out what's in their food. And did it come in contact with something because like it, it was so nerve racking. It's to begin with, and I had to find the what we'd like to call the hippie store that has all the green organic everything. Yeah, because the cereal that the baby cereal that I used for her could only be bought at those stores. No regular grocery store had it.
Unknown Speaker 13:34
Oh my god. And so our learning curve, how old you are at that moment.
Caitlin 13:39
I was I guess 23
Scott Benner 13:42
Oh, holy. I didn't expect to curse. But that's crazy. 23
Caitlin 13:49
Yeah. Yeah. I said why wait? Yeah, but you have a little background. My husband's 13 years older than me. So there was a son of like,
Scott Benner 14:01
a second. Caitlin. How do you work this out? What's going on? How long did you date? Alright, hold on a second. Everybody.
Unknown Speaker 14:06
Going back.
Unknown Speaker 14:09
We get to come up.
Unknown Speaker 14:10
I knew it would come up. You
Scott Benner 14:11
brought it up. Caitlin. By the way, Caitlin said in one of her emails to me, I'm craving adult interaction. I thought oh, she's gonna be great on the podcast. So you're good spill. How did this happen?
Caitlin 14:22
And I'm craving adult interaction so much, so much more since COVID. Exactly. To specify. Well, I met I met him at a friend's birthday party. And, you know, at that time, I was like, 21 and he was 34. So I
Scott Benner 14:41
just thought it'd be fun.
Caitlin 14:44
As matures women, I don't know if you've noticed that. Oh, we kind of hit it off.
Scott Benner 14:48
You let me take another sideline with you for a second standing in my yard. The other day, I see my neighbor who's like 63 and we're talking and out of I don't know where the conversation went. But I said it was like, you know, I really think I'm turning into a person. He goes, what I said, long, I just turned 49. I said, I feel like I'm, I'm starting to mature, like I really do. I think in the last five years, I'm really pulling it together. And I wasn't kidding. I really meant that, like, I think I'm finally forming into a human being. So I take your point, so you had to reach up into the 30s to find somebody who could talk to you like they were 21.
Caitlin 15:23
Yeah, pretty much. But also, I mean, I had a lot of life experience at that point, probably more than most.
Unknown Speaker 15:29
So what does that mean?
Caitlin 15:32
I was in the system for a bit before I turned 18. And then, you know, I'd gone to foster homes and such, and I'd had jobs and I got into a car accident that kind of made me realize that I had to do something important with my life and kind of grow up. And I'd actually met him like four months after my car accident. It wasn't a huge car accident. But still, it made me think
Scott Benner 15:57
this episode is gonna be two hours long. So my car basically, in the system, you met the foster system?
Unknown Speaker 16:04
Yeah. Did you? Well,
Unknown Speaker 16:06
I mentioned your parents,
Caitlin 16:07
Dad near the end of it, but was followed by a social worker for like three years.
Scott Benner 16:13
Because something someone did to you or because something you did to something else. Do you end up with
Caitlin 16:20
a hard time describing it really, I don't know. I just, I didn't get along with my mother who I lived with. And so we had some issues with running away because she just didn't get me. And then I ended up like, my dad wasn't sure he could take me. So I ended up in a group home, doing a little bit of time in juvie, but mostly because they just didn't know what to do with me. Yeah. And every time they put me somewhere, I would do something bad and get kicked out. So they're like, well, you're going in there because they can keep you locked up in there.
Scott Benner 16:51
Well, part of the country.
Caitlin 16:53
I'm in Canada.
Scott Benner 16:55
Oh, my goodness, this is so wrong. Canadians are supposed to be nice. Let me write that. Well, wait, I'm just saying that those people were nice. But you're apparently you and your mom didn't get along? Well, I thought if there was a fight in Canada, that it just devolved into. Eating maple syrup with a spoon and everybody laughing. That's not what happens.
Caitlin 17:14
No. And I didn't take out my dueling glove either.
Scott Benner 17:18
I've never seen a Mountie
Caitlin 17:20
our personality is kind of never dived. And I I don't know, I don't I don't really want to go to No, I'm not asked don't go
Scott Benner 17:28
any farther than you want to. But I hear you had problems with your mom, you ended up in that situation. You wrecked the car, I'm assuming under some sort of influence. Am I right? No, no
Caitlin 17:38
actually just drove it. I was just driving a little bit too fast on an exit ramp and my tire blew out. And I wrapped it around a pole at 70 kilometers an hour. And luckily, it was the passenger side that hit first because the passenger side was in my lap.
Unknown Speaker 17:54
Oh my god.
Caitlin 17:55
So if I'd hit the other way, it probably would have been a lot worse. I didn't break anything. But looking at it afterwards. And, you know, I was like, Okay, wait, like, I need to figure something out and find a plan for my life. Because just going to work and going home. And that's just not enough for me, I need to do something worthwhile.
Scott Benner 18:14
Wow. So that was your moment where you're just like, Alright, I'm going to, I'm going to be a productive part of this world. And for myself, maybe and if not for everybody else.
Caitlin 18:23
Yeah, and not reproductive. That wasn't the original plan. I gotta say, just because, you know, if you like you had a car accident, then you met a guy and you had a baby. It didn't quite go exactly like that. Well, let's
Scott Benner 18:34
get back to this party, Where, where, you know, the superstar hits you up, and you're getting along and everything and how you're married in a couple of years.
Caitlin 18:47
Yeah, it was actually really fast. I don't know, we just had a pretty good connection right away. We conversation was really easy. We both had different, like very different life experiences. But we were both kind of in the system for a bit and had trouble with our parents. And, you know, he was in the military before. So he had a lot of Army stories and stuff, which was cool. And we realized when we were chatting that, you know, we lived pretty close together. And we have similar goals in life. And we just didn't start off with the intention of dating. It was just chatting, and then we went to dating and then I don't know, it took like two months for me to move into his house. Because I mean, at the time, I was just living in my dad's basement. So I mean, I was happy to get out of there. And then then, a few months, I guess into it, he proposed maybe nine months after we started seeing each other.
Unknown Speaker 19:49
Wow, Caitlin,
Caitlin 19:50
and then, you know, a few months after he proposed I got pregnant. And then we're like, okay, so our plan to get married the year later just got pushed up a year, right. And then We planned we planned a wedding in like two months.
Scott Benner 20:02
Wow. And then some handful of months later, you really are a very mature person standing in a hospital with a baby who's unconscious?
Caitlin 20:13
Yeah, exactly.
Scott Benner 20:15
Probably maturity another 10 years. That moment. Hmm.
Caitlin 20:18
Wow. Yeah.
Scott Benner 20:19
Do you know what I mean by that? Like, I feel like that sometimes like there's sometimes things that happen, they just level you up, I guess for you know, I don't know how to say it otherwise, but you just go from one level of understanding maturity, whatever to another one in a split second. And I would think an unconscious baby would would do that for you. You probably went from 23 to 30. In that afternoon,
Caitlin 20:41
I feel like it like I'm 35 now but I feel much older.
Unknown Speaker 20:45
Yeah, yeah,
Caitlin 20:46
I have that feeling. You know, I've been through so much. No, one thing that though, like, especially big allergy like dairy. One thing it does is it teaches you that you have to start from scratch and I never really was a big person that cooked. I liked the pre prepared things that I could just toss in a pot and mix the sauce in with the pasta or ordering in we used to eat out or order in a lot. And all of a sudden all of that was gone. Yeah. So I had to learn to cook. I had to learn to bake because I was like, Well, my kids first birthday. They're going to need a cake. And I can't buy a cake from a bakery. I can't buy a cake from a grocery store because they're all made with like dairy. I need to find something. So I learned to bake. I couldn't use one of those boxes, the cake boxes. Okay. And yeah, so all of a sudden, it was just like, I had to grow up really fast. So
Scott Benner 21:37
you're pretty clean eating household then right? But you you you know everything that's in your food.
Caitlin 21:42
Yeah, knowing it and caring about it are two different things, though. I gotta say. How do you mean? Well, I know what's in the food. And just as a little background, it's not only dairy that she's allergic to, we found out through multiple other reactions. She has a few other allergies. And we found them out usually all in the same way. involving you know, epi pens and emergency room visits and stuff. But we like she has a lot of food allergies.
Scott Benner 22:11
What other things is she allergic to? Or would it be easier to list the things she's not allergic to?
Caitlin 22:16
Well, they're just, they're just major things. I mean, she's allergic to eggs.
Unknown Speaker 22:19
Okay.
Caitlin 22:20
Also, she's allergic to Sesame. She's allergic to peanuts. And she's allergic to beef blood,
Scott Benner 22:30
if that makes sense. Beef blood so she can eat well cooked beef.
Caitlin 22:34
Yes. But sometimes it gives her stomach issues. But nonetheless, she can eat beef in theory like a spaghetti sauce. It's fine. We're so good. Because I've learned to cook with horse meat. And I really didn't like horse meat.
Scott Benner 22:47
Hold on a second. Write that down. is me so? Beef blood, because there's a protein that gets cooked out.
Caitlin 22:55
Exactly. Okay. It gets transformed when it heats to a certain temperature.
Scott Benner 23:00
What What about eggs? Do you know what her interaction her bad interaction is with all these things? Like you said protein for there's a protein in the dairy one and the beef is there. Like what about eggs, sesame and peanuts?
Caitlin 23:12
Well, it's the the sesame oil yet again, it's all a protein. So there's a protein in the sesame oil that she's allergic to. For the eggs. She's allergic to it. The the yolk the white end when it's cooked, because some people can tolerate cooked egg but we tried that and it didn't work. Okay. We tried it at the hospital. Just clarification the allergist did a test about it and she failed the test.
Scott Benner 23:35
Well, this is my this. You knew what I was gonna ask you because I'm like, how do you test and you test every food? Like is is like the first five years of our life just like okay, touch this. Get in the car. Oh, wait, you're okay. Get back out of the car. Like how do you test the food like that?
Caitlin 23:54
Well, it was a nerve racking for the first I mean, the dairy was one thing. And then at nine months, she was nine months old when we introduced the egg. And she had the reaction to that. And after that I got like, almost like PTSD. And I don't like overusing the term but I woke up in night sweats, wondering if she was alive. So I'm gonna call it PTSD because it took me a few months to get over it. But I was always worried every time I introduced a new food that the reaction would wouldn't appear instantly because it can take like eight hours. And I was worried that she wouldn't be alive when I went and got her in the morning because she would have had a reaction overnight. And she's just a baby. She can't even get out of her crib.
Scott Benner 24:34
So every time you feed or something new that happens again and again and again over and over and over and it looks like five times. You came true. Did you end up in the hospital each of those five times eggs? sesame excetera
Unknown Speaker 24:50
Yes.
Unknown Speaker 24:51
Same experience was
Caitlin 24:52
she out? Um, it wasn't exactly the same. It strangely the the egg one was like Just projectile vomiting. I can't really say it any worse. And she was red and swollen everywhere, but she didn't like pass out or lose consciousness. But we had the epi pen at that point which made it better. Okay. And I mean, giving an epi pen to a baby isn't. It doesn't feel right. But it worked. And the first after the first time I did it, it was like, Okay, I can do this epi pen, Call an ambulance go to the hospital. Wow, I'm
Unknown Speaker 25:25
sorry.
Caitlin 25:26
That's so that was I mean, that was her childhood.
Unknown Speaker 25:30
Really? Kind of yours too.
Caitlin 25:35
I was I was I lost my childhood long before that, at that point. Well, then whatever sounds sad, but actually, I don't mind. I don't look back and say oh, what if? Because, you know, it is?
Scott Benner 25:45
It is what it is. So I don't want to dig too far into this. But do you enjoy being the kind of parent you wish you would have had?
Caitlin 25:54
Yes. Okay. I guess I do. And sometimes I feel like, I'm not doing the best job that I could or I'll notice myself saying things that I promised I would never say to my own kids when I before I had them. But I think we all do that. Like oh my gosh, I sound like my mother. Yeah, I think at some point, yeah, I've
Scott Benner 26:13
done a few things that I think my dad did. And but Kelly's good at calling me and being like, Yo, what are you doing? Man, you know, and stopping me pretty quickly, which is very helpful. Because in the moment, sometimes those things feel like they feel right, because they're kind of all you know. Okay, so Hold on. Let me clear my head for a second because my I just had three questions. They take us in three different directions. Um, does she have anything else besides food allergies?
Caitlin 26:45
Well, she has diabetes.
Scott Benner 26:46
Yeah. When did what came next? I guess after the food allergies should be the question.
Caitlin 26:51
What we figured out all the food allergies. And then in grade one, we figured out she had ADHD, like really badly, and I had my suspicions. How do
Unknown Speaker 27:01
you figure that out?
Caitlin 27:03
The teacher said she couldn't sit down for more than 30 seconds at a time. And she flew off the handle very quickly when anything was like went not to plan. She also had like tactile issues, like she doesn't tolerate certain fabrics of clothing. Or like seams in her socks. She doesn't like those things. Unfortunately, she also doesn't like the feeling of a medicalert bracelet or any of those medical IDs. And we've tried lots, but she won't wear them.
Scott Benner 27:38
Is ADHD considered autoimmune or is is our
Caitlin 27:42
separate. So that wasn't really autoimmune. It just kind of made everything a little trickier. Like for the food allergies, she had to know not to touch anyone else's food. Because she always had her own food. Yeah. But when you don't have like great self control, and you don't think through your actions.
Scott Benner 28:05
It's hard not to want to throw a medium rare steak at your siblings. I hear what you're saying. Yeah.
Caitlin 28:10
Well, I mean, we did have a case where she grabbed the milk cup from her sister when she was younger. And we she knew that she wasn't allowed to, but she just picked up the wrong one, even though it was a different color glass. And she drank out of it. And that was another ER visit.
Scott Benner 28:26
I tried to imagine the military like, scenario that happens, like she grabs the milk and everybody just gets up going to the hospital and then everybody just goes to their positions. And is it just like a very orderly situation? Get that you get the epi pen, I'll get the car running. I mean, you know, one of these got to clear the caribou out of the driveway so you can get moving and stuff like that. And so
Caitlin 28:52
all the 10 feet of snow out of the driveway.
Scott Benner 28:54
Yeah, I mean, gotta call a Mountie. There's a lot to do.
Caitlin 28:59
Yeah, and the Mountie has to saddle his horse.
Scott Benner 29:02
Listen, you're making my point for me. A lot of problems really, you got to wait till the third periods over. What if it goes into overtime?
Caitlin 29:11
We can stream on our cell phones up here. You know, we can't leave
Scott Benner 29:15
now. Pawel bored, he's got a hattrick Alright, so the ADHD can lead to issues like that. Is there something to do for the ADHD?
Caitlin 29:28
She has she's on medication for it, which helps her a lot during the day to concentrate there are side effects to it, which are not ideal, but we have to deal with them. Because the alternative is that she doesn't go to a regular school. It was at the point where the school was like she you have to get this under control or we were going to have to send her somewhere else because we cannot handle her.
Scott Benner 29:50
Okay. So the medications so that she can stay in school but you see side effects that you don't like what are those
Caitlin 29:58
mood changes as She's like her behavior is better, but she's not as happy. Okay, she's in, she's still very oppositional that doesn't really help with the opposition. And it cuts her appetite. Very like a lot during the day. You should
Scott Benner 30:16
put her in a car and drive it into a pole.
Caitlin 30:19
I don't think it works at that age, though.
Scott Benner 30:21
Okay. Well keep it in mind as a backup plan. Stranger as right. Alright, well
just keep in your head. You know, it's not it's not advice, but it's a it's an idea. Okay, so
that's unpleasant, and I'm sorry about that. What comes after the ADHD?
Caitlin 30:44
Then it would be the type one,
Unknown Speaker 30:46
then you get diabetes? Yep. How old when that happened?
Caitlin 30:50
Um, that was two years ago, actually. Almost exactly. So September 2018.
Scott Benner 30:57
When that happened? Did you just think yeah, of course she had IV. Or, or what? Were were you in the in the ability to accept things as they come?
Caitlin 31:09
I think actually, that's, that's funny, because that's what seemed to surprise the doctors so much. Like, because just the way we accepted it. I mean, not to say we were happy about it. And we weren't like, Oh, well, of course, something else is going to go wrong. We were We were upset. But at that point, we were like, okay, but this is our life, and we have to deal with it. Just like everything else that's changed in our life. It's just a little more. So you know, what's it? I mean, it is a big deal, but at the same time, like, I'm not gonna trade my kid in because they have medical issues, right? Which is the funniest thing like, Oh, well, how do you do it? I get that all the time. How do you manage? Well, what's the alternative? You know, it makes me feel like like, what's the alternative to managing my kid dies? Yeah,
Scott Benner 31:52
right. I'm not gonna do I can't not do it. But it makes me feel like, you know, those old war movies where the young guys are huddled in the, you know, huddled with their clutching their gun and crying. And there's some Western guy who's just wandering through while people are shooting and shelling, like, just like, whatever. This is how it goes. People shoot at us, and doesn't seem to flinch. It sounds like you're just you're hardened at this point. You just, you can deal.
Caitlin 32:19
Yeah, I think that's it. Like, really. I mean, we had our suspicions that were weird things that were going on. At first, I thought it was the ADHD medication she was on. Like, she had times where she was just like writhing on the floor and screaming that she wanted something, which was super out of character. I mean, even for an eight year old.
Unknown Speaker 32:43
When water,
Caitlin 32:45
like water or just that, like, I don't know what to do, I need to run but I don't want to run I need to run but I don't want to run. And just like I don't want to go outside. But I want to go outside and just this total, like need to move
Scott Benner 32:57
was the most was the that's interesting. Do you think it's possible that the effects of the high blood sugar was fighting with the ADHD?
Caitlin 33:07
I'm thinking so actually, like looking back on it, I thought it was just that she was going through a hard time with like adapting to a schedule change or whatever, right. But looking back, I'm thinking like at those times, her blood sugar was probably really high. And we just had no idea. So she felt terrible,
Scott Benner 33:23
couldn't move. But our brains telling her we can't sit still.
Caitlin 33:28
Yeah, because it needs to burn off energy. Because she had like the excess of sugar. Like I think that's what it was, but and it only happened occasionally for maybe like two weeks. And then we went on vacation. And we went camping. So for two weeks, she was running around all the time. And we were outside at the beach in the water and like snacking constantly, but at the same time like burning off stuff.
Scott Benner 33:54
But you're in Canada, how do you go to the beach? Is it just like icebergs and like some sand and with rocks?
Caitlin 33:59
You know, Nova Scotia is really close to Maine. Oh, I
Scott Benner 34:03
see. You're not Antarctica. I don't I gotta get a map, I think really take a hard look. I can actually
Caitlin 34:12
if the border were open, I'd be able to drive to the US in less than two hours.
Scott Benner 34:16
Oh, yeah, your kid could run there. 90 minutes. Just so you know,
Caitlin 34:20
is a lot faster than me. And I'm not proud of that.
Scott Benner 34:24
somebody tried to get my son to go to Maine to go to college. And he took a call with with a coach and he got off and he's like, the guy was trying to sell me on the idea of they go hunting. He's like, I don't want to shoot anything. I don't want to have to hunt just to play baseball. And I was like, I don't think you do and he goes to really good school. And I said yeah, I'm like, I think it's in Canada, though.
Caitlin 34:50
but not quite.
Scott Benner 34:52
Yeah. So he's like, I don't I I'm not it's too cold. I was like, No, I hear you. So anyway, I know where Maine is. I just didn't know that. I didn't know you live near there.
Caitlin 35:02
I'm sorry. I'm in Quebec. Not far from Montreal.
Scott Benner 35:05
Okay. All right. reference point. Yeah. Well, then you even laughed. I made a bird a reference. He was Vancouver. And you still know Canadians, you know everything about hockey. Seriously,
Caitlin 35:18
I was being polite.
Unknown Speaker 35:19
You don't, don't don't
Caitlin 35:20
really follow hockey. To me, like, the only hockey player I'd love to hear about is Max Domi. And that's because he's the guy. And he's, he's type one. And he plays for the Montreal Canadiens.
Scott Benner 35:34
So if I y'all skate the ice, you won't immediately I'll shoot the puck afterwards. Nothing like that. Okay.
Caitlin 35:40
No, I don't skate either.
Scott Benner 35:43
I don't either, like
Caitlin 35:44
winter, and I don't like maple syrup.
Scott Benner 35:45
You kind of get the hell out of Canada. I seriously, I'm looking I want to retire. Somewhere where it doesn't snow when it's not humid. Other than that, I don't care what the place is. Do you think that place exists?
Unknown Speaker 36:00
No,
Scott Benner 36:01
yeah, I don't either. But that's what I want.
Caitlin 36:04
Unless you want to go to like Saudi Arabia.
Scott Benner 36:09
Doesn't snow not humid. I also don't want to be in prison for no real reason. So I
Caitlin 36:16
thought the only country that came to mind really quickly, I'm not very good at geography. I have to
Scott Benner 36:20
admit, I don't know anything about the political setup of Saudi Arabia. But I have to imagine that I would do something to get myself thrown in prison pretty quickly. So I'm gonna have to take a hard pass on that. But I seriously I, I either that or I need like, 5 million more people to listen to the podcast every month so that I can own a house somewhere. I I'd like to have a summer house and a winter house maybe. But I don't think that's in the cards. Anyway, well, we'll work on it. That's my dream is summer house winter house, I really want to avoid humidity and snow. That's all I have. And you know what will happen? I'll finally get to that I'll send to this place where I can have a summer house and a winter house. And then I'll get old and I won't be able to travel. And then I'll just be pained by the fact that there's a house somewhere that's not humid in the summer, and I can't get away.
Caitlin 37:09
That's really depressing thought.
Scott Benner 37:11
Yeah, that's what's gonna happen. Anyway. Okay. So tell me about how you manage type one with the other stuff. Does the other stuff impact the type one management?
Caitlin 37:22
It definitely does? I mean, I'm sure everyone goes through it at the beginning. In our case, when we went to the ER, her blood sugar was and I didn't bring my calculator I promised I wait,
Scott Benner 37:36
wait, hold on a second. If you just go to computer Juicebox Podcast calm right at the top, click on a one cm blood glucose calculator, you will be taken to a handy dandy little device. So you tell me a number. I'll click on m m o l, you say a number and then I'll I'll translate it for you.
Caitlin 37:58
42.6 42.6
Scott Benner 38:02
was an A Oh my goodness. was a 767 blood sugar, which translates to a 28.4 a one say?
Caitlin 38:11
Yeah, that was her number when we went into the ER
Scott Benner 38:26
de veau hypo pan has no visible needle, and it's the first pre mixed autoinjector of glucagon for very low blood sugar and adults and kids with diabetes ages two and above. Not only is chivo hypo pen simple to administer, but it's simple to learn more about. All you have to do is go to G Vogue glucagon.com forward slash juicebox. g Vogue shouldn't be used in patients with insulin, Noma or pheochromocytoma. Visit je Vogue glucagon.com slash risk. You know not all devices are created equal. For instance, there are a lot and I mean a lot of blood glucose meters available for you to purchase. But sometimes we don't think of it that way because the doctor just writes a prescription and they usually write the prescription for the blood glucose meter that I don't know they normally write prescriptions for doesn't make it the best one doesn't make it the most accurate doesn't make it right for you just makes it the one they are accustomed to talking about. Well, I'm here to talk about the Contour. Next One blood glucose meter. It's simple. This meter is incredibly accurate. It is small and easy to carry, but not so small that you'll drop it. There's a bright light for nighttime viewing. The screen is easy to read. And if you want to pair it with their Bluetooth app on your Android or iPhone, you can and if you don't want to, you don't have to. Can I tell you a secret? We don't use the app. I just love the meter and so does Arden. If it's in her purse, if it's in my pocket, the test strips are incredibly, incredibly accurate and allow for second chance testing meaning should you swoop in there hit a little bit of blood but not enough, you have time to go back and get more without impacting the accuracy of the test. We're wasting the strip. That's all you need to know in my opinion, Contour Next one.com forward slash juicebox. Go there check it out. There's actually a ton more on the site. But today, I'm just want to make sure you remember that meter rocks. Contour Next one.com forward slash juice box. Last thing, please consider visiting T one d exchange.org. forward slash juice box and putting your information into the system. Okay, what am I saying? T one D exchange is gonna ask you to take a short survey. I believe it took me about seven minutes, you're going to need to be a US resident with type one or a US resident who is the caregiver of someone with type one, you answer super simple questions about diabetes. That will in no way make you feel uncomfortable. I was like these are easy. I can answer these. Now when you do this, it's completely anonymous. No one's gonna know it was you. And it is 100% HIPAA compliant. T one d exchange.org. forward slash juicebox. Why do you want to do this? Well, in my opinion, it's because past participants like you have helped to bring increased coverage for test trips, Medicare coverage for CGM, and changes in the ADA guidelines for pediatric a one c goals. And I personally am excited to imagine what your participation and mine will eventually lead to, isn't that cool? You answer some questions, they dad it up, and then they go do good stuff in the world, you can be part of that without ever leaving your house, you can do it from your phone, your tablet, your laptop, you cannot do it by smokes. But maybe if you give them enough data, they'll figure out how to do that. I don't think that's going to be true. You know, I'm gonna take that last part back no matter how much type one data you put into the T one D exchange, we're not going to figure out how to connect smoke signals to computers. And just real quick data for those of you who prefer data over data back to the show.
Caitlin, you're a bit of a neophyte on this. What you should have said after that was What's the address of that? calculator? That's amazing. And I would have said it to Juicebox Podcast comm forward slash conversion. And then you would have told the story about the rest of it. Go ahead. got
Caitlin 42:34
very sorry. No, no, no,
Scott Benner 42:35
no, it's it's your Canadian. You have no way to know. Go ahead.
Caitlin 42:38
Well, I do listen to it. So I should have known.
Scott Benner 42:42
I didn't know I was gonna pimp in there for a second. You were like, oh, it will just keep telling the story. Trying to tell people about the calculator. Caitlin, come on. I was thrilled you're from Canada.
Caitlin 42:53
No, so that was what her blood sugar was. When we went to the hospital. She's and that was that was that wasn't right after a meal. That was like five hours fasting.
Scott Benner 43:05
Oh, my goodness. She's She's got diabetes. Yeah.
Caitlin 43:08
So it was bad. And they basically brought us into the back and checked and she wasn't MDK apparently we she was really close, but not quite. So they gave her an injection. And they watched us for a few hours. And they sent us home
Scott Benner 43:22
to have a private room at the ER. That one was Yes. No. I mean, like one with like your name on.
Caitlin 43:29
At that point. I know some by name.
Unknown Speaker 43:32
Yes. Hey, you want to get Kaitlyn Oh, whoa.
Caitlin 43:37
No, I try to avoid it at all costs, but that her file is definitely thick. Every time I go there.
Scott Benner 43:43
The computer slows down. You can hear the hard drive clicking. It's like trying to bring the information up. Or do you have computers in Canada? Right?
Unknown Speaker 43:54
Yes, yeah, I'm on one now. Oh, fancy. Yeah.
Scott Benner 43:59
But honestly, there are 15 raccoons running on a wheel outside to make your own electricity, though, right.
Caitlin 44:06
Raccoons are a little above my budget. What are you using? mice?
Scott Benner 44:10
Oh, well, that's that. I mean, they're easier to feed. Exactly. Yeah, that's fine.
Caitlin 44:15
So you steal the neighbor's bird feed.
Scott Benner 44:18
Why isn't your neighbor like 10 miles away? Don't you have to get on an ATV to get your mail or something like that?
Caitlin 44:23
Well, mice run fast. Oh,
Scott Benner 44:25
well, you ride the mice. Now we're doing now we're getting somewhere.
Caitlin 44:30
I'm trying to play along here but it's not working.
Scott Benner 44:32
I have no idea why your mom didn't like you. I'm just kidding. Sorry. I wasn't even funny.
Unknown Speaker 44:37
And yet I'm laughing with the alcohol but Okay,
Unknown Speaker 44:40
we're gonna Oh, okay. I got you. I said, Well, yeah,
Caitlin 44:44
so the note so they gave her the injection of I guess fast acting and then they gave her a small snack. Which they actually had me go through their cupboard of food and I picked out a little baby food pouch of applesauce. Cheerios, because that was all that they had that she could eat. And she had that. And then they tested her blood sugar, like three hours later said, Okay, we're good. It went down enough. Now you're going to come back first thing in the morning, and you're going to go here, and you're going to talk to your doctor. And this was Labor Day weekend. So like we went in Friday night, she got back from school. And then we were there Saturday morning, first thing in the morning, and we met her endocrinologist. And we started the whole like, crazy. Everything.
Scott Benner 45:31
That's so yeah, that really sucks. Labor days. The only weekend I feel comfortable taking three days off in a row.
Caitlin 45:38
Yeah, it's this weekend, and I'm so happy. Yeah. Except it's kind of like a bittersweet thing, because it's now the diversity weekend. So
Scott Benner 45:45
yeah, no kidding. ruins picnicking and everything. Well, I have a question that's got little to do with what you just said, but it popped into my head. I think I'm gonna lose it if I don't. How much food do you travel with when you leave your house?
Caitlin 45:59
Well, a lot. Yeah, like we went camping. I took the kids camping this summer, my husband was still working because he couldn't get time off. It was a new job. So I took them camping out by Lake Huron. And we drove all the way. And my van was packed with food. Because I never know what I can get when I'm somewhere else. So like, she has like special chocolate. I have to buy specific brands of certain things. And I never know what's available. So I'm always packing everything.
Scott Benner 46:34
You're a hoarder, I would imagine. And
Unknown Speaker 46:36
I have to be Yeah, right. I
Scott Benner 46:38
on purpose. He did the other two kids have anything going on?
Caitlin 46:42
Um, luckily, no, my second one is allergic to peanuts. But at that point, they're like she's allergic to peanuts. I'm like, Oh, good. They're like, Oh, good. I'm like, like, I'm like only peanuts. I'm really not worried about that.
Scott Benner 46:54
Did you like smack her and say, Listen, you got to try harder.
Caitlin 46:59
I was super relieved. And then like my, my youngest, my son, he's not allergic to anything. So I was like, Okay, I guess Third time's a charm, they say and that worked that time. So
Scott Benner 47:09
what's the what's the age difference between the three kids?
Caitlin 47:14
Get again, you're gonna be like, what? 15 months between the first two? I understand. 18 months between the second two.
Unknown Speaker 47:20
You really don't like the cold?
Caitlin 47:21
No, my body doesn't like birth control. Oh, oh,
Scott Benner 47:26
you like your husband? I see what you're saying.
Caitlin 47:28
Yeah, it's, uh, let's just say it didn't work for me.
Scott Benner 47:31
You want to try putting him in a colder room? Because you might you might just avoid him.
Caitlin 47:35
I'm fixed. I can't have any more kids. I don't. That's why do you want it? You're so young. I'm like, I have three. I have nothing. I have nothing against adoption, if I want one later on. But I do not want to have more.
Scott Benner 47:47
He would he said Why do you want one? You should have touched milk on your oldest and been like, here, watch this.
Unknown Speaker 47:55
I don't want any more kids.
Caitlin 48:06
They don't like to do the surgery before you're like 30 or 35? Because they figure you might change your mind? And I'm like, No,
Scott Benner 48:12
yeah, I hear I said I see their side of it. But you can mean three kids is three kids. Yes, a lot of kids.
Caitlin 48:20
I do have six weeks a year where they follow an age. So my son is turning nine in October. And so for six weeks, I'll be able to say my kids are 1110 at nine years old. which always makes people kind of like jaw drop.
Scott Benner 48:38
Yeah. Or judge you quietly in their mind probably
Caitlin 48:40
always judge me. Or they get the impression that they're all from different parents, like all have different fathers.
Unknown Speaker 48:48
Oh, because they think at least one of you should have been saying
Caitlin 48:52
I'm young, you know? Yeah. I don't know. Like, no, it's I've been married. They're all the same father and I'm still married. Yeah,
Scott Benner 48:59
no, I mean, you're one of those. It's interesting. It sounds like you're gonna be married forever. And listen, I I'll be honest, like I've said on here before, like, the way my wife and I got married. The fact that I told you earlier that we have been married for 24 years, I think is is fairly astonishing and uncommon, to be perfectly honest. And, you know, we were very Yeah, we were super young. And, and she said to me the other day, she's like, what were we doing? I was like, I was a huge mistake. We really, we're always telling our kids like 30s a good age to start thinking about getting married. You know, you have kids when you're 55 That's it. That's how you handle it. I don't know if the kids are offended when we tell them that.
Caitlin 49:44
Oh, my husband seems to be on the on that hole. Well, you can date when you're 30 thing.
Scott Benner 49:49
Well, he he thinks so. Cuz he's lucky. He reached back 10 years to get a girl. Exactly. Yeah, he's like, I think he can wait till you're 14. Grab
Caitlin 49:57
yourself a nice 29 year old Usually you marry up for money, but I made a mistake there. You just went for the bank the bank statements.
Scott Benner 50:05
You just went for a good conversation. Gotcha cheap. I'm just saying, Hi, I know you're gonna hold out. Well, we didn't get to one thing that I don't want to skip over it. But from your email, eczema, she has eczema as well. Yes, she does. Now that's autoimmune, right? Yes, it is interesting.
Caitlin 50:27
Which means like, at this point where I actually forgot, but yeah, when she was a baby, it was really bad. Funny, I guess a funny semi related story was that we had a dog when she was born. And the dog loved the baby, and was so protective of the baby. But her eczema was so bad. And it was like, we'd be like, it was read. And it was just like dripping.
Scott Benner 50:57
Yeah, like, fluid, right?
Caitlin 50:59
Yeah, baby scratch, and we couldn't keep her hands off of it. And so we thought she was allergic to the dog. And so we actually found a better another home for the dog, which broke my heart. But we didn't like just dropped them at the pound or anything. We rehome him through a rescue. And we kept them until he went to his new family. And his new family sent me pictures. And so I knew he was in a good place. So I felt better about it. And we found out after the fact, when she had a reaction to egg, that it was actually the dog food she was allergic to wait a minute, every time the dog would touch her. He had traces of the food on his mouth or on his nose, or on his fur. And it was actually that she was reacting to the egg and his food.
Scott Benner 51:46
Oh my god, your life is crazy. By the way, this story would have been better if you said wolf dog. But that's neither here nor there. So keep going.
Caitlin 51:56
So she was a really big dog. So she
Scott Benner 51:57
wasn't allergic to the dog as so much as alerted to what he was constantly touching and being and that was enough. Yeah, could you in hindsight, would there have been a dog food you could have gotten that would have stopped that?
Unknown Speaker 52:12
Yes. Oh,
Scott Benner 52:14
you're sad about that. Right?
Caitlin 52:16
Yeah, but I mean, at this point, my dog like the dog is definitely dead.
Unknown Speaker 52:21
The episode, the dog is definitely dead. I think it's the name of this episode, Kate.
Caitlin 52:28
I mean, he was in Newfoundland and newfoundlands live like maximum like nine to 12 years, but 12 years is the max
Scott Benner 52:35
just timewise he
Caitlin 52:36
my daughter's like 12 and are almost 12. Yeah. So he would have been like 1415 by now. Well, that said,
Scott Benner 52:43
I just realized, as you were telling the story, I'm like, Oh, I bet you there was food that would have allowed them to keep the dog.
Caitlin 52:50
But I mean, looking back, it probably wasn't the worst thing in the world anyways, because it gave me more time to spend with my kids. I was gonna say and not have to worry about the dog and the dog for because newfoundlands talking about like 160 pound dog with long fur that draws a lot. But like, the sweetest dogs, they're like, many dogs. Yeah, they love kids, and they're super tolerant. But it's a lot of work to take care of a dog that size too.
Scott Benner 53:14
I agree as a person who was outside five minutes before I recorded with you going oh my god, Basal just go to the bathroom and get in the house. I gotta go upstairs. In the same time, I'm like, Am I pressuring this dog to do his business? I wouldn't like if someone was outside of the bathroom door going like, come on, Scott. Hey, Scott. Come on. I was doing it to the dog. Like we gotta go, man.
Caitlin 53:38
As an aside, we live in an apartment. We only have one bathroom. So five people one bathroom. I know how that feels. Oh, my gosh.
Scott Benner 53:44
How did the caribou get out of the parking lot? They must get all stuck because of the cars. Have you ever seen a caribou? Just Yes or no? Caitlin? Oh, yes. Oh, do you call them reindeer? No, I would. For no real reason. I would just be like Santos nearby. Okay, so food allergies, eczema, ADHD, type one diabetes. I missed asthma, right?
Caitlin 54:17
Yes.
Unknown Speaker 54:18
Ah, how does that
Unknown Speaker 54:21
manifest like I
Caitlin 54:25
we just noticed one doctor's appointment that there was a little bit of like, her lungs didn't sound clear. And that she was coughing a little bit and they said, Well, she probably has asthma. Do you ever notice that she's short of breath? I'm like, Well, sometimes. And so they prescribed her inhalers. It's never been anything that's led us to go to the ER, or anything like that. It's really just when she's doing intense physical exercise, or when she has a cold.
Scott Benner 54:53
It's interesting that your Mendoza line for illnesses. It's never sent us to VR, so it's not really a problem. That's that that was it. Just make a statement.
Caitlin 55:01
It's a strange baseline, but it's what we know. Yeah.
Scott Benner 55:05
So how does all of this I mean, let's talk about her like a person now, instead of a case study, like, how does all of this impact her?
Caitlin 55:16
Well, I mean, personality wise, she has a, she's not the most outgoing kid. And she doesn't like being different, because she's always been different. I mean, in daycare, when she was doing daycare, she, she had a packed lunch from home and everyone else had the food that they were serving at the daycare. And at school and kindergarten, she had to sit apart from everyone else in the lunchroom to make sure that there was no chance that she comes into contact with anyone else's food and kids throw food. So she's always felt different. So she doesn't like talking about these things at all. Okay, she doesn't like, just come out and say, you know, I have diabetes. And this is what diabetes is. And sometimes I have snacks. And sometimes I have to give myself insulin. And it's just the way I am when she's not comfortable doing that. So she likes to keep it all inside, which is really hard for her. And I'm hoping at some point that she becomes more confident to just, like, tell people about it. But I can't push it. I tried to actually, I think her teacher the first year that she was diagnosed, because it was the first year, the first week of school, that it happened, we didn't have a plan beforehand. Like she had been in school three days. And that's when she was diagnosed. So we kind of went in, she didn't miss any school. After the long weekend, she was right back at school. And it was kind of like, Okay, this is what we're dealing with. And the teacher got a little bit too proactive and tried to explain to the class, what she has, like what diabetes is, and it embarrassed her so much, because she didn't even understand what was going on at that point. Like it was new to her and she didn't want to talk about it. And there was a teacher telling everyone about her medical condition. Yeah, I think that actually just made it that much worse for her.
Scott Benner 57:12
Jenny and I just did an episode about talking about diabetes to people outside of your, you know, circle who don't listen to that. Yeah. And you just made me think of when I think I think I said in the episode, like the difference between what people need and what you think they need is sometimes, you know, a pretty big difference. And you don't know what other people want. And sometimes you try to help and you make it worse. So,
Caitlin 57:37
yeah, I know the teacher meant well, yeah, of course. And I mean, I've explained to her it's it's probably easier for you to explain at the beginning of the year to your classmates. why sometimes in class, your phone is beeping or why you're taking out rockets and eating rockets are those are Skittles or Smarties. Sorry, those are Smarties. You guys rockets are Smarties.
Scott Benner 58:01
Why don't I change the name just because a different country
Caitlin 58:03
because Smarties are actually like m&ms here. Well, yeah, it's a different brand of m&ms. Smarties is m&ms rockets are smart chocolates. So
Scott Benner 58:15
all right. I mean, jeez, who came first?
Caitlin 58:18
I think the Smarties like the chocolate thing with the candy over it came before which is why when your Smarties came here, they called them rockets.
Scott Benner 58:25
So we ripped you off.
Caitlin 58:27
I have no idea sounds like that's what's going on. I could probably Google it. No, don't if this is gonna be like a who got it. First thing I don't I don't want to get that far.
Scott Benner 58:35
Because I could get I could get absolutely enraptured by it. And just you know, we can talk about
Caitlin 58:40
like, the history of candy. Yeah,
Scott Benner 58:42
candy naming more specifically, not even the candy. I'll be like, Mars bar. Next, Caitlin. Where's that from? The podcast will be 19 hours long. And I'll be like, oh my god. Do you guys remember $100,000 bar? Why'd they change it to 100? grand? Which to you is probably m&ms but God Who knows? You don't I mean? Well, that's, I mean, that's really not great, obviously. And it's so she's trying to keep it private. Is that does that how does the ADHD conflict with the needs of diabetes? Or does it?
Caitlin 59:27
I don't know if it necessarily does, it's, it's harder to say because I can't expect my 11 year old to be on top of everything all the time. Sure, but she's very forgetful. So she'll forget her PDM and I have to just as opposed to nagging her. Okay, make sure you have all your stuff packed. I have to go and check it to make sure that she did because she's forgetful. The medication that cuts her appetite during the day is definitely a problem because that impacts her energy levels and also changes the way that we dose Insulin,
Scott Benner 1:00:00
because you can't get her to eat if you're in a panic situation.
Caitlin 1:00:04
Exactly. Like she's, I've had to threaten her with glucagon before. Like, I don't care if you're hungry, you're gonna eat it. Or like you've been dosed for it. You said you were gonna eat it, you cannot change your mind now. Okay, which actually, we don't Pre-Bolus anymore. I know. It's terrible, but we can't put that
Scott Benner 1:00:21
medication. It stops her from having any hunger at all.
Caitlin 1:00:26
Yeah, or it sometimes makes she says it makes her feel queasy to even think about eating. I'm sorry, which we're trying to figure it out with the doctor to see if maybe there's another one that won't impacted as much. But that's, there's a lot of different medications for ADHD. And they all work a little bit differently. So it's a trial and error, unfortunately, on that sense,
Scott Benner 1:00:46
yeah. Well, how does her? How does our agency usually run? And are you? Are you at least able to keep things kind of stable, or what happens?
Caitlin 1:00:58
Um, it's not as low as I'd like. But on the other hand, since starting her pump, we haven't had an official agency done. Because COVID
Unknown Speaker 1:01:07
yay. Okay.
Caitlin 1:01:08
So now all of her appointments that we do, they look at the, the numbers on the PDM that we upload, they look at the Dexcom. And they say, Okay, well, you know, do you notice this trend? And I'm like, Yeah, I've already fixed it. Do you notice that? Oh, yeah, no, we've adjusted the basil. So we're good. What doesn't really have anything to add? Really?
Scott Benner 1:01:27
Do you use clarity? Like, what's the estimated a one see through clarity?
Caitlin 1:01:31
It's never been right. Okay. I think I was always worried about that. I think the first time that we went in the a one c estimation that they had was like, 9.8. And it was actually 7.40. Wow. So I never really look at the number because I know that for us, it's really it's always been off. And I don't know why I know. A lot of people say it's right on for them. But maybe it's just because for, for my daughter, it just fluctuates so much. Yeah, I think her blood sugar sometimes goes up really fast, and then down really fast. And like, it's really hard to keep her on a steady line.
Scott Benner 1:02:13
You know, the next time I have somebody from Dexcom, on who understands that, I'm going to ask that question, because we have the similar, you know, I see things to people talking. And for us, it's always pretty close. You don't I mean, like within a not even just a percentage point. Like, you know, last point for something like that. That thing's usually pretty spot on for us. And yet I hear other people say the same thing like, oh, the estimation I get is is never what my one see is an off to find out why that is? That you know how that happens. That'd be interesting to know.
Caitlin 1:02:48
Yeah, I think our endocrinologist said, it. It seems to be about the amount of insulin on board that she might be quite high for me, like in 16, which I'm sure you can use your wonderful calculator. 11.7 a one c 288. blood sugar. Yeah, it can go up pretty high like that, but then it'll go down very soon afterwards. And that might just throw off the numbers in the a one C.
Scott Benner 1:03:15
Okay. So you can go from like 288 to, you can go kind of from like an 11 to a seven or even farther down.
Caitlin 1:03:23
even farther down. Okay. Really fast. Wow. Which makes the management a little bit tricky.
Scott Benner 1:03:29
Yeah, well, but you're not Pre-Bolus thing. So that's kind of to be expected. To be honest, you're shooting up because of the food and then crashing down because of the big Bolus afterwards, I imagine.
Caitlin 1:03:38
Yeah. And also activities a big thing too, because with a kid that's hyperactive, like if she's gonna eat breakfast, usually her breakfast is pretty, it's pretty much the same thing every day, so we can count on her eating it. She hasn't had her medication yet, so it hasn't cut her appetite. So we'll Pre-Bolus breakfast. But she could have that breakfast. And if she's gonna go down and play video games, because it's pouring rain outside, then she's gonna spike and she's gonna stay high. And if she's going outside to ride her bike with her friends, then she's gonna drop low on the exact same dose, the exact same carbs.
Scott Benner 1:04:17
Wow, that doesn't seem
Caitlin 1:04:19
like what works one day doesn't work the next day for her right. And so ratios are all over the place. Because of what she's doing. And we, I mean, we've tried adding extra snacks or, you know, doing temporary increase in the basil to compensate when she does video games and it works more or less. But there are those days where she's planning to do something and then hope she changes her mind and then goes through something else and it throws us off completely. Because her mind is like a ping pong ball.
Unknown Speaker 1:04:50
Yeah. Wow.
Caitlin 1:04:53
She's never doing the same thing two days in a row. So it's really hard to get that baseline to see what works for her. So we have to accept a little bit more. You know, I understand as much perfection, I'd love to see her in the sixes. We're in the sevens, but we're below eight. So I'm okay with that for now. Okay. And we're heading into puberty.
Unknown Speaker 1:05:12
Yeah, it's gonna get worse.
Unknown Speaker 1:05:14
Terrible. She, I
Scott Benner 1:05:15
need more. Did you think about using? Like Omnipod? Five when it comes out? Let's try and an algorithm doesn't
Caitlin 1:05:23
have the dash here yet. Oh, Canada cheese. I
Unknown Speaker 1:05:26
forgot. I don't
Caitlin 1:05:28
even have the dash here. Alright, so still on the old one.
Scott Benner 1:05:31
Are you interested in an algorithm when it's available to you?
Caitlin 1:05:34
I'm actually considering looping. So
Scott Benner 1:05:37
I'm just wondering if if something that would if I don't know like, I don't know if your scenario would be helped by that or not, but interested to find out.
Caitlin 1:05:47
I was I looked into looping. I haven't officially like gone through all the papers and stuff for it yet. But because it would help when she's out. Or when she's at school, at least it can make those little changes. So I don't have to constantly text message her saying you need to do this.
Scott Benner 1:06:03
Are you like limiting basil a lot and like doing Temp Basal.
Caitlin 1:06:08
I don't really usually do Temp Basal. I'll just be like, give yourself an extra point two, five.
Scott Benner 1:06:14
So you're kind of bumping at the at the number. Okay.
Caitlin 1:06:17
Yeah, exactly. So I'm
Unknown Speaker 1:06:19
trying to push down usually. Yeah.
Unknown Speaker 1:06:23
Are you okay?
Scott Benner 1:06:25
I'm gonna I just want to know if you're okay.
Caitlin 1:06:27
I'm good.
Scott Benner 1:06:28
You are. You just you're like you're not like secretly, like a heroin addict. Or, like, in the middle of the night, you don't leave to do high risk cooking or something like that just to do to escape. There's nothing crazy happening to you like, how are you coping? I guess is my question.
Caitlin 1:06:46
Well, I mean, it. Diabetes in itself is very stressful. It's probably the most stressful of everything. Because for allergies, I control what comes into the house, I make the food. And in general, if something's going to go bad, it's going to go bad right away. And I'll see it right away. But diabetes, I know, there's such long term impacts of everything. So I sometimes I'll fall asleep, and then she'll go high, because she had more protein at dinner. And I won't wake up to adjust it because my alarm goes off, but I ignored it. And then in the morning, I'll feel terribly guilty. But yet again, I need to sleep sometimes. And it's, it's hard. There's always parent guilt that you have about everything. And every decision you make when you're a parent, even if your kid is like perfectly healthy without any problems. It just adds an extra layer to it. So I guess it's just extra guilt. Finding time for things that I used to do. Before all of this, it's harder. like finding a babysitter isn't as obvious anymore. There's like one parent, one person that I can leave my kids with. And that's Grandma, and right now is COVID. I can't leave them with grandma. Yeah, no, cuz they're going to school.
Scott Benner 1:08:09
Oh, yeah. Well, Canada. Yeah, they sent him right out there like you go get him. How is How is COVID? there? Are you guys? Everything's coming back to normal or not yet?
Caitlin 1:08:22
Well, it the numbers were really high for a bit. And then they dropped back down. And they're starting to increase again, I guess because people are getting tired of staying home. They did reopen businesses. And so people are more in contact with each other. So I mean, nothing compared to what you guys are going through at all. But in the province of Quebec, we're getting like 100 and something new cases a day. It's 100. At one point, it was over 1000. Yeah. So it's definitely better than it was. But it's still enough to make me wonder that, you know, maybe we shouldn't be leaving the kids who are in school with 400 other students with grandma who has COPD. I just
Scott Benner 1:09:02
put an episode up yesterday. That's with a teacher. It was recorded right now. And by the way, I guess for context, it's September 3, but Kayla and I are talking right now. And we were talking about, you know, going back and I said I don't see how this is going to go well at all, but I guess Okay, let's, let's see. But you know, Arden's not going back to school. She's doing it remotely. And my son, my son's doing college remotely. He's like, quite literally down the hall right now getting an econ degree in his bedroom. So
Caitlin 1:09:31
no, what if it was an option? And maybe if I didn't work full time,
Scott Benner 1:09:36
Yeah, I know. I understand that. I understand the you know, the limitations for most people. I mean, I I do this so I can do this here. And that kind of opens up our options for keeping the kids with us. Oh, my gosh, dude. Alright, but you you just you just I'd like how are you hating on you said I'm okay. I'm good. That's I either you're lying to me or you're good. I don't know which one it is. But either way, I'm I don't. I'm not judging you. I'm just like, it's it's a lot. You know, it's also interesting to hear you say that the diabetes is, though, is the worst part of all this?
Caitlin 1:10:15
Yeah, it's the hardest to manage. It's not that it's like worst was the bad words won't kill her instantly. And if she has peanut butter, it would kill her within like minutes. But it's easier to avoid peanuts than it is to avoid eating.
Scott Benner 1:10:32
Well, it's true.
Caitlin 1:10:34
And we had, like, I think around the time that I sent you the email being like, I wanted to chat about this, like we were having huge power struggles with food. Okay, that was one of the biggest things that we were having. And one of the times we decided that that's when we we couldn't Pre-Bolus anymore. Is that one of the only things like she, in her, I guess her personality, she likes to control anything that she can, because she has so little control in so many aspects of her life. And that started like with the food allergies, because she couldn't control what she ate. So she wanted to control when she ate and how she ate. Now with the diabetes, it adds it added the extra well. Now what you eat is important, but also when you eat and how you eat it. So everything about it is important. Yeah. So we have to have the control. And she resented that for the longest time. And so what would happen is we'd sit down and she'd be like, Oh, yeah, for sure. I love this. I'm going to eat it. And then we dose her for it. And then she'd say, No, I'm not hungry. Now I want toast. Because she loves bread. Yeah,
Unknown Speaker 1:11:47
just to make the change, like
Caitlin 1:11:49
chicken and vegetables. That's what everyone's having for dinner, you're gonna have that. She's like, No, I'm not. You already gave me my insulin make me toast. And I was like, What?
Unknown Speaker 1:12:02
Caitlin? I'm gonna send you a link.
Caitlin 1:12:04
And so we got to this point where? Yeah, we got to this point where it was like, okay, the we have to come up with some way to work this because I can't sit there and threaten you with a glucagon injection. Or pour corn syrup down your throat, which we've done a few times. Because she just so demand she hated corn syrup. That was the only thing that we could get into her for carbs that were quick, when she was already been given the insulin and she was going down, but she suddenly refused to eat, because she wanted us to make something different. And I was like, No, okay, it's either this or I'm giving you a quarter cup of corn syrup.
Scott Benner 1:12:47
Oh, my God, that sounds terrible.
Caitlin 1:12:50
Okay, maybe not a quarter cup. That's a lot. Maybe like an eighth of a cup? Yes, it's a lot of sugar. And it's
Scott Benner 1:12:54
not your fault. Use a different system of measurement. So
Caitlin 1:12:57
I never understood ounces. Nope, totally strange. But so you're Yeah, I
Scott Benner 1:13:03
mean, that's really stressful. What you just said like, I felt stressed when you were saying it. So I don't know about like doing it must be. And I think everyone listening knows that pressure, who's had at least a smaller child or somebody who just refused. Like you're standing there at someone's, you know, literally crashing down with all this insulin going and you're just you're just like, you have to eat you have to you have to you have to and it's just such a panicky feeling. You definitely are not at your best in those moments. And and I think I've been there for certain. And, and your thing is compound that like 15 times over. I was going to say, if I send you a link, and you please have her get on the schedule for six years from now to record the podcast, because when she's 18 I really want to talk to your daughter.
Caitlin 1:13:50
Much Did your mom actually miss you? Yeah.
Scott Benner 1:13:53
Hey, siddhis Kaitlyn lady, right?
Caitlin 1:13:57
This whole thing that she did, like, how did that work for you? Are you even still alive?
Scott Benner 1:14:01
No, I just want I mean, her perspective on all this stuff. One day is gonna be fast. I don't imagine she'd be somebody who'd want to come on the podcast, but this is really interesting. And her perspective would be would be incredible, actually, because you're just doing the best you can. And you have obviously a lot of roadblocks and listen, she's she's in school, like you kept her in school. That's amazing. Right? She's her a one sees lower. She's, you know, as healthy as you can as you can accomplish right now. That's amazing. There's a lot here. I mean, you guys are doing you're just doing more than than I think anybody could expect. So it's really great. I you should be congratulated. I'm sure nobody's I don't know if anybody's ever taken the time to say to you like well done, but this is, this is well done. You are, You are the ringmaster of quite a show and you're and I can I can
Caitlin 1:14:59
It's not a show is a circus.
Unknown Speaker 1:15:02
I was gonna say you get the whole thing, right. You're all three rings. circuses don't even exist anymore.
Caitlin 1:15:09
No, not really. I don't know. They have like this horse thing. It's not as though Cirque du Soleil is still around, though they went bankrupt. I don't know how that's gonna work after COVID
Unknown Speaker 1:15:20
Yeah, it's not.
Caitlin 1:15:23
Not at all. Yeah. So, no. And it's it's interesting, too, because I think we've started on this. And then I got sidetracked because I do that very easily. Do you have ADHD? After the you know, when they take you in and they start doing all those the lessons after diagnosis? Yeah. And they're teaching and they have all these handouts pre prepared, and the nurse sits down with you. And in our case that we weren't in the hospital, so they didn't do it in the hospital. We went in, like two days or two mornings every week for like, a month. And they did the trainings and little bits. And they're like, Okay, well, here's some great idea for carb free snacks. And here's some good things like protein things. And I was, I would look at these sheets. And I would say, okay, nope, nope, nope, nope. Okay, cucumbers are okay. Nope, nope. And we just went through the list. Like, I can't, like I had to reinvent the whole thing. Yeah. Because that they're like, Okay, well, you know that. Some when you're maintaining blood sugar after a low, and it's going to be more than an hour, you give like some crackers and peanut butter or cake? No, we can't do that. Yeah. You know, or we can try this. No, we can't give yogurt. And this yogurt that's made with soy. It spikes her too fast. And it doesn't maintain for quite as long. So it doesn't act in the same way. So there's not always like a direct replacement for all of these things. So we had to kind of reinvent the diabetes wheel.
Unknown Speaker 1:16:53
Because for her, yeah.
Caitlin 1:16:56
And like, I'm on a few forums, and I keep seeing these things pop up, like oh, what are suggestions for this? And I have so few it's like, okay, you can have pepperoni sticks, or jerky? other CARB free snacks, vegetables.
Scott Benner 1:17:13
Yeah. Like, by the way, a lot of vegetables have carbs in them. And we tend not to think of it. So yeah,
Caitlin 1:17:19
but negligible. Like they're not the carrots of the world, but more like the cucumbers. And that's all she eats. Yeah. She doesn't like carrots. She likes red peppers, but they're too curvy.
Scott Benner 1:17:30
Is there even a way to quantify her diet? Or there's not right, like you just it's a bastardized diet that just fits for her.
Caitlin 1:17:38
Exactly. Okay. I mean, sometimes, like when I'm looking up recipes, I'll go like vegan, I'll type in vegan because it doesn't have the dairy or the eggs, for sure. Right? A lot of them have nuts and peanuts, because they want the extra protein. Or they have those fancy flowers that we can't use because they most of them are contained or may contain sesame's and others like traces of that. So I kind of melt together different recipes and like, Okay, I'm going to try it without this, or I'm going to add this instead. And you learn to adapt regular recipes, to not have that, like most any baking recipe that has milk, you can put soy milk instead, or almondmilk. But it's like the eggs. Not always the same. There's not they have egg replacement powder, but it doesn't work the same way as eggs do. Gotcha. So you have to find out different ways to do things. And it's just being creative, I guess. And a lot of trial and error. I was
Scott Benner 1:18:37
gonna say, how many meals Have you made where you're just like, Oh, god, this is not edible. Don't touch this.
Caitlin 1:18:44
That's usually like the day before I do groceries. And I'm like, I don't have much in the fridge. I'm just gonna toss a lot of this into this into the pan and stir fry it and serve it with rice. How about that?
Scott Benner 1:18:54
Wow, do do you do two meals? Or does the family pretty much all eat the same?
Caitlin 1:19:02
It depends. I usually like to cook one meal, because it's easiest that way. Yeah. But because of her allergies. My other two kids don't have those allergies. Sometimes they want things that she can't eat. And I'm not going to say like I always said from the beginning. I'm not going to take her allergens out of the house, because then nobody could eat anything. So I have milk in the house. We have eggs, I have peanut butter. We have lunch that we don't really have anything with sesame because sesame seeds get everywhere. But pretty much everything else we have in the house. And so sometimes I'll put a lasagna in the oven, and I'll make her like a submarine sandwich for dinner. Because she loves submarine sandwiches. It has her favorite ingredient bread.
Scott Benner 1:19:50
I love bread every listen. It's hard not to love bread. I have to be honest.
Caitlin 1:19:54
Yeah, that's it. She doesn't like pasta. Okay, so anything that's pasta, if you have Do you want anything pasta? like then? You know she'll have to have something else but she's gotten used to it. You know, we occasionally order pizza. I'm so lucky we don't have to deal with the pizza problem that I keep hearing about. Because we never have to dose for for pizza.
Scott Benner 1:20:15
Well, wait out Why? Because kids can eat cheese. She can't eat cheese, so she just doesn't touch the pizza at all.
Caitlin 1:20:22
Yeah. Okay, so have something else. All right,
Scott Benner 1:20:24
you'll never have to be involved in in the pizza Bolus.
Caitlin 1:20:28
Exactly. We got this, uh, this other pizza that was made without dairy. It has like, actually the same cheese replacement that she uses that she likes for her sandwiches and everything. But she did not like the pizza. So that's better.
Scott Benner 1:20:45
Wow. So is there any? Does any of this? Obviously the doop doop, I guess I'm gonna ask a stupid question. Because I don't know the answer to people grow out of allergies. That doesn't happen, right?
Caitlin 1:21:00
It does.
Unknown Speaker 1:21:01
It does. Yeah, it
Caitlin 1:21:02
does happen. The dairy, especially the egg, it can happen. Peanut isn't so common. But she's been tested for it. They said at the levels that at the severity of her allergies, chances are that she would never outgrow them. And actually, we had an allergist appointment a few months ago when they test her for everything. And she's still allergic to everything. So it looks like it's there forever. She's not one of those lucky kids that's eventually going to be able to eat it. And she doesn't qualify for all of those, those therapies that desensitize you. Because of the severity of her allergies with
Scott Benner 1:21:42
treatment, it wouldn't make it go away. It would just maybe lessen it a little. And if you just stay away from it, it's not a problem.
Caitlin 1:21:48
Exactly. It's easier to stay away from it. Because, I mean, I've looked at the protocols for them and gone through it, but they treat with steroids and steroids are gonna make our blood sugar terrible. So we just said you know what it is? It's just gonna be there for a while. And if when she's an adult, she wants to do it. That's fine. But we don't have time right now. Well, I don't think it's worth the risk. Yeah,
Scott Benner 1:22:10
I that sounds reasonable to me. How about the ADHD is the hope they're just a different medication that doesn't impact their mood, the same way.
Caitlin 1:22:19
Ah, I'm hoping that she learns to deal with it. I know that, that sounds really awful. But as much as medication helps, the ultimate goal is to be able to understand the way that your own brain works. And to learn to adapt the way you do things so that you can do things in a very similar way and be as effective as anyone else. tool to help that. But it's not like the crutch.
Scott Benner 1:22:49
So the hope here is the time and maturity and understanding kind of come together and, and help a little bit with that.
Caitlin 1:22:56
Yeah, and then maybe she won't need maybe as strong of a medication. Or maybe she'll go on to a different one. She's also tiny. I have to say you always said that art and like I listened to the podcast from the beginning. Thank you. I have to say I skipped a little bit in the middle. Oh, whoa, whoa, whoa,
Scott Benner 1:23:10
whoa, slow down a second. First of all, for people listening, it's not okay to skip. You start at the beginning of every episode. That's the deal. Okay. I watched your season. I listened to I watched the entire season on Netflix. That was not good. And I and I did it. Anyway, there were five seasons of a show. When I got to season three. I was like, This is terrible. But I soldiered through and I expect the same from all of you. But okay.
Caitlin 1:23:35
I skipped a few in the middle. But I did read like the headlines and a lot of the ones I skipped were like the the update to dex columns and all of those. Oh, they were just older. That's fine.
Scott Benner 1:23:44
You know those things? I didn't mean to jump down your throat. I'm sorry. That's fine.
Caitlin 1:23:47
I just to put it into context. I didn't mean like they weren't interesting. Although they were terrific to be like, I just wanted to be more
Scott Benner 1:23:54
up to date. You just didn't need to hear the announcement about the g4. Yeah, gotcha. I had I've never used right and it's not available anymore. I don't think so. Alright, that is acceptable halen. Okay. So and I guess too, so maybe there's a little hope with an algorithm based pump. Pick there is there is incremental gains to be made for you in here. Some of its time some of its technology some of its hoping, I guess. maturity Yeah. Wow. Oh my God, if one more thing goes wrong, is that the end? Are you just gonna like put some stuff in a bag and be like, Okay, well, goodbye.
Caitlin 1:24:37
Oh, man. I mean, it's always on your mind, right? Because you always have this thing in the back of your mind like okay, my other two kids, they don't have anything else. What if you know my oldest got diabetes, but my son is in the same grade as my oldest was when she when she got diabetes? Is he gonna get it two. And a few weeks ago, he was like, I'm so thirsty and he was drinking a ton of water. And you're not I chased him around the house. For 20 minutes with the meter until I wrestled him to the ground, and I got a blood sugar test. Because I was just so paranoid that Oh my God, he's gonna get diabetes too.
Unknown Speaker 1:25:09
Yeah. Now you mentioned you was really
Unknown Speaker 1:25:12
thirsty. He was just thirsty.
Caitlin 1:25:15
Like, I guess he hadn't had any water all day. And then all of a sudden, he went to the bathroom, and he's like, six glasses of water just down to them. And I'm like, how can an eight year old drink that much water?
Scott Benner 1:25:24
Now I can understand you being concerned? How about the like you said the worry about Michigan when she was younger? Is that gone? For the most part, you don't wake up in a sweat anymore? Do you?
Caitlin 1:25:36
know not so much? I think sometimes. There is that some of those days where I wake up and the first thing is like, wow, I slept really well. And then the second thought that goes into my head is Oh, crap. I have to check the Dexcom Did I miss anything? Yeah, so it's like, it's always the next thing in my head. Like if I slept? Well, it means that maybe I missed an alarm.
Scott Benner 1:25:56
I hear it. I've had that thought. Yeah, I've listened before all the technology, you wake up and realize you slept soundly through the night? And I think I go God is Arden. Okay, that would be like the first thing I felt like that I sleep through something. Now it's to be perfectly honest, like she wakes up at the same blood sugar every morning. But quite honestly, I you know, but there's a lot of years of, of practice in. Yeah,
Caitlin 1:26:27
actually, her blood sugar's great overnight recently, but I'm not. I'm because everything in her life has been kind of like a little experiment. The doctor was always there. The endocrinologist was always saying, Wow, you're so you're so quick to learn this stuff. You're so good at making your own adjustments. I'm like, Well, that's because I've had to adjust everything else in our lives. Yeah, that's what you do going like, Okay, I'm not sure. Like, maybe I think I need to increase the basil between this time and this time, and I would just do it.
Scott Benner 1:26:56
Yeah, you have time for something. I'll
Caitlin 1:26:57
go back to it.
Unknown Speaker 1:26:59
Exactly.
Caitlin 1:27:01
Well, I if she goes low, the Dexcom is gonna beep and I'm gonna know and I'll treat it and then I'll know like, okay, that wasn't the right thing to do. It's one
Scott Benner 1:27:09
of the most amazing aspects of diabetes that I've, I've, I've never really understood, which was that idea of like, well, we'll just wait three months until someone tells us something else. And I get the fear. But I never I, you know what, I guess I kind of misspoke there. Like, I had it too when I was, you know, first add it. But since then, since I've kind of gotten away from it. It's the thing that never ceases to amaze me. Like, it's the one thing that I think, Wow, how do people get caught in that? How did I get caught? Not even. But it's because it seems so obvious. blood sugar's high, use more insulin, right? blood sugar's low, use less insulin, you know, like, like that. That's sort of an idea. And it's fascinating that it continues to happen over and over and over again, day after day after day, and nobody can change. I'm helping a person right now. And I've explained this thing to them three days in a row, and every day they understand it. And then the next day, they don't do it. It just keeps happening. It's fascinating, you know, and they'll get to it eventually. But it's just like, You understand, right? Like this happened because of this. So you still need to do this. Yes, Yes, I understand. Next day. Did you do that? No, I just didn't have the nerve over and over again. So good for you that you just were like, I don't have time to. I gotta just do this, you know?
Caitlin 1:28:36
Yeah. I mean, they say like, the, I think one thing that the hospital was really great at at the beginning, when we went through all the trainings was teaching us to adjust it on our own. It wasn't just like, this is how you're supposed to feed them. And this is how much insulin you have to give. But they said, okay, but if you notice what I have to call for one sec. I know you're gonna edit that out. So we're good.
Unknown Speaker 1:29:01
You have a lot of hope for me, God.
Caitlin 1:29:02
So I know that. Like when I see a trend for three days of her going higher or lower at a certain time that that means there's an adjustment that needs to be made. And they showed us how to do that. And they gave us suggestions on it. And when we did the class for the pump, they did the same thing. They said, Okay, this is what, like, this is how you change it. And this like if you see a high here, this is where you want to adjust it. Because remember, there's a four hour action. So if the kid is going low at 2pm every day, maybe you want to adjust the basil that's before it.
Unknown Speaker 1:29:35
That's encouraging,
Caitlin 1:29:36
you know, instead of the one that's like at two because that's too late, the insulin is just going in, then it's not the one that's changing it.
Scott Benner 1:29:42
Yeah, that's good to hear. It really.
Caitlin 1:29:44
They taught us like really well, I was really confident in that. But obviously there's I know that there's people that go through the same trainings as us that won't be as competent in it. And that's just a personality thing. I think I mean, my husband's military or former military, so He wants to like he's like, okay, let's just do it. They told us we can do it. Let's do it. Let's try it. Well, not everybody, and that'll be like, okay, you know, I think like, I think I want to try this. I, I don't know if it's gonna be good. We'll see. But you know, make sure you can hear the alarm tonight because if I'm sleeping too much, I want to make sure you like wake up.
Scott Benner 1:30:18
Yeah. Listen, not everyone has your life experiences either. Caitlin, those those you? We went through a training ground for this stuff. You're You're as ready to do these things as anybody you know.
Caitlin 1:30:27
Oh, yeah, I did the boot camp.
Scott Benner 1:30:29
You certainly did. Look
Unknown Speaker 1:30:30
at the boot camp. Listen,
Scott Benner 1:30:31
how old were you the first time you ran away?
Caitlin 1:30:35
I'm 14. Yeah,
Scott Benner 1:30:37
that's ballsy. You know what I mean? Like, seriously, it really is like, Look, I better off somewhere other than here. I'm going. That's not that's not a not something a 14 year old I think. Does lightly
Caitlin 1:30:51
plan the runaway very well. I didn't really know where I was going. I just left.
Scott Benner 1:30:57
I'll just walk in this direction. Did you bring food?
Caitlin 1:31:00
Yeah, I brought some stuff with me. Nice change of clothes. New socks. You know
Scott Benner 1:31:04
why? Yeah. You don't want your feet to get
Caitlin 1:31:06
my bank card.
Scott Benner 1:31:07
They say your bank card or your 14? Yeah, you do
Caitlin 1:31:12
not like a credit card. Just like interact debit.
Scott Benner 1:31:15
Yeah, but you had some money in the bank?
Caitlin 1:31:17
Yeah. Get out of here. Oh, I had I had like a I walked. I used to walk a dog for an old blind guy. I walked a seeing eye dog cuz he was getting too old. And the dog was getting stopstopstop 20 bucks a week. I
Unknown Speaker 1:31:35
don't know why that struck me. You. It's a seeing eye dog. Its whole job is to walk. It needs to be watched for. Other than that to
Caitlin 1:31:43
while he was getting fat because the guy was like 90. Like he left the house like once a day to do groceries?
Unknown Speaker 1:31:50
Did you have to let the dog
Caitlin 1:31:53
and the The company said like weren't You're too old. We're not going to give you another scene I dog when this one goes. So he wanted someone to walk it to help keep the dog healthier for longer so that he'd have them?
Scott Benner 1:32:05
I say, did you have to let the dog lead you while you were walking so that it could kind of do what it was supposed to do?
Caitlin 1:32:11
No, as soon as they're like, as soon as the dog isn't on a harness. They're like a regular dog. Oh, when you put on the special harness, then they're working and they know they're working. But when I would walk them, I'd walk them on a regular leash. And he was like, just, I'd take them to the park and we play fetch. And
Unknown Speaker 1:32:25
that's fascinating.
Caitlin 1:32:27
Like, it's completely different. Like he's very well trained. And he would come when I call them and everything but he was like a regular dog when he wasn't when he wasn't on the hardest,
Scott Benner 1:32:35
like how to work in play mode.
Unknown Speaker 1:32:37
Yeah,
Scott Benner 1:32:37
that's that I find that I'm so glad we found. That's really great. I'm gonna end on that, because I don't think we're gonna learn anything more interesting than then service dogs have, like, different years. That's, that's really cool. Did we not go over anything that you want to talk about?
Caitlin 1:32:55
I don't know, oh, there was something I don't even know if it's like relevant or related or anything? Let's find out. But there's this like one thing when I'm on these groups, and I think it carries through to like all these type one groups. Okay, but I'm on and you have to understand them on groups for, you know, differently wired kids also, and I want groups for allergies. So I have all these different Facebook groups. And I don't read everything because there's so much stuff. But there's just one thing that just it blows my mind when I see it. And I understand. But people just generally get so up in arms about people making jokes about diabetes. Like this comedian is terrible person because they made a joke about diabetes. And we're going to boycott it, because it's horrible what he said. And like, you would never joke about someone else's disability or whatever it is. They all follow kind of the same line of thinking like, you wouldn't joke about that. Why is diabetes so funny, right?
Unknown Speaker 1:33:58
And this bothers you.
Caitlin 1:34:00
Yeah, it bothers me because, and I don't know if it bothers me, but I like to try to explain it and I gotten kind of tired of trying to explain it that you like we as people who live with people that have type one diabetes, or we're caregivers for people with type one. Or maybe we do have type one ourselves, we live that so when someone says something that's hurtful, or a joke, that's like a joke, this just out of off color for us. And it, it hits the wrong way or it rubs us the wrong way. We only noticed it because that's what we live. Right. But there's plenty of people in my other forums for allergies where this guy was joking about, you know, kid couldn't eat ice cream, because they had an allergy. And that's so stupid and it exists everywhere. If and these comedians are making fun of everybody. Yeah. But if you don't live it, you don't notice it.
Scott Benner 1:34:57
Right. That's a very rare sponsible way to think of it a very mature way to think here's what I think about humor, okay? It's very simple to me. Everything has to be able to be funny. Because of the exact point you said, like I noticed a comedian that I like, and for years, he would make fun of adopted people. And the first time I remember it hitting me right in the center of the chest. I was like, Oh, I'm adopted. That's not funny. And then I thought, Oh, no, wait a minute. If I wasn't adopted, what I've laughed at that. I would, so it is fine. And I just have a sensitivity to it. And so I just at that moment, said to myself, if you're going to appreciate humor, then funny is funny. The if it's funny, it's funny. And if it's not, it's not. But there's no in between. It's either funny, or it's not funny. And you can't pick and choose, you can't say, well, that's funny, right? But that's not it's not funny to be adopted. But it's super funny. To have a seeing eye dog need to take a walk, you know, like that, because that just doesn't work that way. And if you're trying to make it work that way, you maybe shouldn't avoid humor all together, because it's not. I mean, I get the like, my disease isn't your punch line kind of feeling. And the people who it's striking, are having such a hard time probably at that moment that it's hard to hear. But I have to say that if you put me in charge of the world, I think I would have agreed with what you said. I think you just have to let let comedians be comedians, and sometimes they're gonna say stuff that's offensive to you. And you know, what's the option? They don't ever say anything offensive to anyone. And then comedies gone just like that, you know,
Caitlin 1:36:43
you can turn it off, you can opt to not watch the show again, you can do whatever. But writing them letters about how you're a poor kid isn't the shouldn't be the butt of your joke. It's a little over the top. Because something needs
Scott Benner 1:36:59
to be the butt of the joke, or there won't be a joke.
Caitlin 1:37:01
Exactly. Like we're always laughing at something. Yeah, everything. Nothing's important. I've laughed at everything in my life. I've had to at some times, because it's a way to de stress. And you know what, sometimes I hear these jokes about diabetes. And I laugh at them. I mean, yeah, it hits me on a little more personal level, or the kid that has an allergy. And you know, well, maybe the kids shouldn't be alive or Darwinism or whatever. I laugh at it. Because, you know, I got to admit, in the back of my head, I'm a very like cynical and kind of dark person. I have a dark sense of humor. And it's funny. I mean, of course, it's my kid. It's different. But I can see how it's funny.
Scott Benner 1:37:41
Yeah. Well, it's the somebody's saying
Caitlin 1:37:44
you should go out and do that. He's a comedian. Yeah. It's a way of venting. It's a way of just expressing yourself. And you might not agree with it. And you might not just like anything, politics, you don't agree with it, or like, it's you. It doesn't mean the other person's wrong. Everybody has they don't agree with you. Yeah,
Scott Benner 1:38:02
well, people are multifaceted. They have different experiences, their context is different. And so they're going to find some stuff one way and some stuff another way. It just gets weird when you start telling people what they can say. Because it bothers you.
Caitlin 1:38:17
And it's a slippery, very slippery,
Scott Benner 1:38:19
I will admit, by the way, some comedians are just not as good as others. And so you can have someone tell a joke, and it comes off really poorly. And another person can craft a similar joke where it feels more well thought out and constructed and told, and they do hit differently. Like some of it's just, you know, and people were just being mean to be mean. That's probably hard to take. But there are some comedians who just go with mean, and there's, you know, some people like that, too. So just Yeah, like you said, like a avoided if you don't want to hear it, but also to hunt it down, just to be upset about it. As you know, if I didn't hear it, but you put it on Facebook, and I'm like, oh, man, I'm outraged. Like, you're outraged, like you didn't even know.
Caitlin 1:39:05
Yeah, we have or had a comedy festival in Montreal. That happens every year. That's a
Scott Benner 1:39:10
that's one of the best comedy festivals in the world.
Caitlin 1:39:13
Exactly. And there's a show called the nasty show. And the comedians go there. And from what I understand everything is very just very nasty. And it can be funny, but occasionally, we'll get like a news thing afterwards, like, Oh, this joke offended me because of this. And I'm like, it was the nasty show. You can't like pay for tickets to go to a show called the nasty show, and then complain that the joke was nasty
Scott Benner 1:39:37
come out of the me like this was very, very nasty.
Caitlin 1:39:40
Like, you have to expect it. We put it right in the title.
Scott Benner 1:39:45
Put it we put in the title. It's not a ticket. Well, I will say this about online discourse is that it's very cyclical. And if you're not around it for a long time, like I have been, you don't see it. It seems like there's this world war. Something's happening for the first time. But it's happening for the 9,000,000th time. And it's going to happen again, when you're gone. And someone new is going to come in and have this experience over again, there's only a certain amount of experiences to be had in the world. And you're watching people have them for the first time, over and over and over again, it happens in politics, every, every generation in politics. This happens, like you'll watch a TV show from the 80s to the 90s, that, you know, was a dramatization of politics. And you'll think, Oh, my God, that's amazing. The topics they're covering are the same exact topics that we're worried about today. And I'm like, yeah, cuz there's only so many topics. It's not being it's, it's not, you don't I mean, it's not magical, that they were talking about school integration in the 90s. And you're still worried about school integration. Now. Life is glacial, like, our, our existence is a blip. And, you know, the way you get to real change is over massive amounts of time, that far exceed a lifespan. And so, as every new generation comes in, they experience the same problems, they go about them slightly differently, because their context is different. And the older people look back and go, Ah, we were dealing with that in the 60s, like, yeah, and you still are, except you gave up on it now, because you have a vacation home. So this guy is going to talk about it. And it's just going to keep happening and happening and happening. And that slowly drags progress forward at a speed that none of us can actually say. And that's why people repeat themselves, in my opinion, although I'm a guy with a podcast, and I could be 100% wrong. So but that's what I say. So that's it. So I duly noted, Caitlyn would like all of you in the Facebook groups to calm down.
Caitlin 1:41:50
Keep calm and carry on.
Scott Benner 1:41:52
Here's the funny thing, Caitlin, those people who you see who are upset will one day mature into people who look back and go Hmm. I remember when I got upset about that. But turns out comedy is comedy. So everybody's just learning, you know?
Unknown Speaker 1:42:07
Yeah.
Scott Benner 1:42:08
This was good. I really appreciate you doing this. Thank you so much.
Caitlin 1:42:12
Thanks for talking to me. Yeah, I
Scott Benner 1:42:14
mean, even though you were Canadian. I did it.
Caitlin 1:42:16
I mean, I've heard you talk to other Canadians too. And those caribou jokes that was kind of waiting for them. Well,
Scott Benner 1:42:21
it's the only Canadian reference. I have Mounties. caribou jokes and hockey. I don't know anything about Canada. I mean, what do you know about America?
Unknown Speaker 1:42:31
Um,
Unknown Speaker 1:42:32
nothing. See.
Caitlin 1:42:35
I was gonna go into it. But no. I mean, honestly, most of our news is American anyways, because we just kind of like, you know, this nice thing happened in this community. Look what's happening down there.
Scott Benner 1:42:48
Why are there so many knife attacks in Canada? kaylynn.
Caitlin 1:42:51
Because we don't have guns.
Scott Benner 1:42:52
That is that that's why people stab each other because they don't have guns. Right?
Caitlin 1:42:55
Well, no, we shoot each other too. But we're just not as angry people. You know, they probably started off being like, would you like a slice of cake? stab, stab, because they were. Yeah, I'm
Scott Benner 1:43:05
telling you that the it's that I brought this up before but there's this amazing Twitter feed. It's about this one section. I don't even know where it's at. But they they cover the crime in this one section of Canada and just people stab each other at an alarming rate. That's the only crime. It's always just like, you know, man's naked in the kitchen thinks he's a bird. And then it's you know, stabbing. And then if somebody gets down like that, it's fascinating. But anyway,
Caitlin 1:43:32
I'm not gonna very strange part of Canada. Man naked in kitchen thinks he's a bird. Yeah,
Scott Benner 1:43:39
I saw that one time or I'm making it up. It's hard to know. But anyway, there are a lot of weird things. It's just very, I don't know. And then I have this feeling that that's what Canada is. Which of course it's not.
Caitlin 1:43:51
It's probably just the focus of our news. It works a little bit differently. You guys like the big sensational headlines?
Scott Benner 1:43:57
You guys want
Caitlin 1:43:59
a little bit of everything?
Scott Benner 1:44:00
Yeah. Kid found an old big wheel still works. wishes that was a Green Machine. Like that kind of thing. You're like, Oh my God, that's amazing. I remember Green Machine. But we call them rockets. Alright, kailyn get off of here. You must have something to do.
Caitlin 1:44:20
I'm supposed to be working. But it's okay. Well, thank
Scott Benner 1:44:23
you. I really do appreciate doing this. I sincerely
Caitlin 1:44:26
thanks for thanks for your time, of course.
Scott Benner 1:44:38
A huge thank you to one of today's sponsors. gvoke glucagon. Find out more about Gvoke Hypopen at Gvokeglucagon.com/juicebox. you spell that? Je VOKEGLUC AG o n.com. forward slash juicebox Don't forget you can find the T one D exchange at T one d exchange.org. forward slash juice box. And of course, that Contour Next One blood glucose meter is waiting for you right now at ContourNextone.com/juicebox. Thanks so much for listening. We'll be back soon with more. Who is will w e apostrophe Ll it implies more than one person. I am the only person here I'll be back soon with more. I should have just said I will I will sound better like the show is an entity but it's not an entity. I'm literally the entirety of it. Where is it? If you collect me in the show together is that will. Again not will like will Robinson or I died and left well, but well, like will w e apostrophe. Oh.
Unknown Speaker 1:45:55
Let's try it again. Both
Scott Benner 1:45:55
ways the wood works better. Thanks so much for listening. I'll be back soon with more Juicebox Podcast. Thank you so much for listening. We'll be back soon with more episodes of the Juicebox Podcast doesn't matter. Is it just in my head? I don't think it matters.
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