Scott Benner 3/19/21 Scott Benner 3/19/21

#455 Defining Diabetes: LADA Diabetes

Scott and Jenny Smith define diabetes terms

In this Defining Diabetes episode, Scott and Jenny explain LADA (Latent autoimmune diabetes in adults).

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Today friends, you are listening to Episode 455 of the Juicebox Podcast and today is another in the defining diabetes series. So you know what that means. Jenny's gonna be here.

I've been defining diabetes here on the Juicebox Podcast for ever, it feels like and I've done simple terms like Pre-Bolus a one c, Basal and Bolus. We also talked about honeymooning and things that people don't like to talk about. We've defined non compliant, brutal diabetes, and even talked about terms that are specific to the podcast like stopping the arrows trust will happen feeding insulin bumping and nudging. These episodes are chock full of good information. They're short and digestible. And if that wasn't enough, they're made even better with the presence of Jenny Smith, my friend and certified diabetes educator who helps me on these end the pro tip episodes. So today, Jenny and I are going to define a Lada la da diabetes. A lot of data here we go, we're gonna give you the definition tell you what it is chat about it for a little bit and let you be on your way. Please remember, while you're listening that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, please always consult a physician before making any changes to your health care plan. We're becoming bold with insulin. If you enjoy this episode, look for the other defining diabetes episodes right there in your podcast player, you can just search Juicebox Podcast defining diabetes, and you will get a super long list of them. You can also find them at Juicebox Podcast calm and diabetes protip.com. Speaking of websites, if you go to integrated diabetes comm you'll be at the place where Jennifer Smith works. There you'll learn things like Jennifer Smith has had Type One Diabetes since she was a child. Did you know that true over 30 years Jenny's had type one, she holds a bachelor's degree in human nutrition and biology from the University of Wisconsin. She is a registered and licensed dietitian and certified diabetes educator and a certified trainer on most makes and models of insulin pumps and continuous glucose monitoring systems. And not only that she's a person you can point a microphone out and say to her, what's a lot of diabetes. And she'll just tell you, because Jenny is a font of good information. Not gonna have a bunch of ads, they just want to remind you to go to the T one D exchange, fill out their survey, help other people with type one diabetes, it is free for you, of course, because you're the one doing the thing. It is 100% HIPAA compliant. It is 1,000% anonymous. And if you want to remove your answers at any time, you can so easy thing to do. Why would you do this? Because the decisions that are made with your answers help people living with Type One Diabetes, all you need to be is a type one who's living in America, or the caregiver of a type one who lives in the United States. And you can go do this right now. T one d exchange.org. forward slash juice box. Everyone who completes the survey is benefiting people living with type one diabetes, and you're benefiting the show a little bit too. So thank you for that. I wanted to find Lada and Modi. So let's just start with Lada. Okay, because it comes in the alphabet before. So it just feels like so these are two terms that I have to I'm going to fully admit I don't particularly feel like I understand them. And I know they don't come up that frequently but they come up more often than people might assume. And people are always like my doctor told me I have Lada but they don't tell them what that means. And or and Moody's worse Modi Moody, whatever. modey modey modey. But we'll get to that one because that when people get that one, they're just like, I don't know. It's like something about a genetic and then that's like the best they can say and I don't even know if that's right. But we're gonna start first with you telling me what Lada is. And then we're actually going to use the internet a little bit here, which we don't normally do.

Jennifer Smith, CDE 4:24
Oh, sure. Yeah. I mean Lada is essentially a stands for latent autoimmune diabetes of the adult. That's the term where it kind of comes in right acronym right. And it does get confused. I would say an awful lot. Because typically, Lada is diagnosed in those over the age of about 30 to 35. And it's a very slow progressing form of autoimmune diabetes. So it is it's typical that many Ladas are just diagnosed as type one, okay? Because it's it's autoimmune in nature, but your pancreas over time stops producing inadequate insulin. Unlike the very abrupt and very acute diagnosis of type one typically, it's a pretty quick like very significant weight loss that's very significant symptoms of thirst and, and everything that come into the picture and you know, it's right so and for whatever reason, this sort of destruction of the beta cells happens more slowly in someone with Lada. So it could be years of developing. And many people with Lada they may be initially started on insulin, especially they come in with like high enough blood sugars to diagnose diabetes, but many can for a time period be left just on basal insulin. With a very small amount, still with lifestyle changes, obviously, I mean, you're not going to go out eating like, you know, big chocolate cakes three times a day are they stuck Nadav take insulin for that, but typical lifestyle changes of basal insulin may be utilized for a lengthy period of time honeymoon in Lada can last quite a long time. And in fact, from what the research that I've read about ladder, many who've been diagnosed years ago already with it still have a fair amount of natural insulin production, their c peptide levels essentially come back still in the diabetes range, but higher than somebody who would have like an all out destruction of the betas

Scott Benner 6:51
Well, in this now, so is this personal? Is this the thing? They also call type one and a half like 1.5. Do you hear that that way? Yes. So how do I, if this happens to me? How do I know the difference between this and type two? That's just like not that bad type two?

Jennifer Smith, CDE 7:10
Yeah, I mean, type two, again, is not an autoimmune disorder. So you're not going to have the antibodies, Gad, you're not going to have any of that present. If you have type two, type one and ladder are specific, that the body has attacked the beta cells, so you're going to have those antibodies to prove circulating in the system, to note the reason for the destruction, whereas type two again, and that kind of goes with like, Modi, which we'll talk about later, you know, but there there is no autoimmune component to type two.

Scott Benner 7:48
But people don't as a general rule, doctors don't. When you're, I guess what I'm saying is I've spoken to enough people at this point now who are in their, like 30s, or 40s. They when they get diagnosed, they don't immediately someone tells them they have type two,

Jennifer Smith, CDE 8:02
it's often misdiagnosed. Right,

Scott Benner 8:04
right. So without the antibody test, but the antibody test is a simple way to know that it's Lada and not just a slowly slow form of type two diabetes.

Jennifer Smith, CDE 8:15
Correct. Exactly. And that's it's unfortunate because you know, if you have, if you're somebody who's lean, pretty physically active, just you know, going to the gym a couple times a week, or you run several days a week, and you've never had a problem with like weight management, you have a pretty healthy lifestyle and whatnot and you're diagnosed with Type two, it would be very important for your doctor to go in and ask specifically, you know, I'd really like antibody testing, I really would like, you know, to discuss this further, because, I mean, I've seen it clinically myself. Before I was working for integrated I actually the clinic that I was working at, was working primarily as a dietitian and then a diabetes educator just for like the type two population and a gentleman was referred to me to come in to talk nutrition, right. And in looking at his record, he was just newly diagnosed, I looked at his age, I looked at his weight I look, this guy was like a marathon runner, and like a like an endurance athlete. And I'm looking at his data and looking at his levels he had come in and DK to the emergency room and I'm like, this guy is not type two. I call this doctor and I was like, one you need to get him referred. And two, I said my discussion with him needs to be different and three, you need to get him on insulin. He said I can guarantee he's feeling like crud right now. While you're like telling him he's type two.

Scott Benner 9:37
Because physically you look at them and you think this this isn't a person that even if they have type two diabetes, eating their way to decay can get into decay it with type two diabetes. Um,

Jennifer Smith, CDE 9:49
it, can you it's very rare. I guess that's the easiest. That's the easiest explanation is that it's very rare. There. Are some, I guess what our lack of a better word like some ketone or ketosis prone subtypes of type two, but we don't see decay in type two. We instead when they come in, in the emergency room with really high blood sugars, we usually see something or we usually call it something called honk. It's like a nonketotic, hyperosmolar. ketosis type of situation, it's, I know

Scott Benner 10:28
that honk just made me smile. She's trying to say something serious. And I'm like, wait, they call it honk. That's amazing.

Jennifer Smith, CDE 10:35
But again, it's very specific to type two because type two IDs will not usually be in DK.

Scott Benner 10:41
It just occurred to me while you were saying that I don't know that I've ever heard a person who has type two diabetes, say they were in DK. And I thought, so. Why would so the doctor in this scenario should have put those things together? Correct. Right. Okay.

Unknown Speaker 10:56
I should have what it could.

Scott Benner 10:58
Well, I guess we start waiting for all that to happen.

Unknown Speaker 11:00
We just that's another discussion.

Scott Benner 11:03
Listen, you doctors pull this all together, and you're gonna take my podcast away from me. So you just keep doing the job you're doing okay? I mean, really? Okay. So if I'm older, and it looks like I'm in that situation where like my a one sees like in the five and a half ish range, and doctors are starting to say like, Oh, you might be developing type two diabetes, I asked for the antibody test. It tells me for sure. Do I have type two, or a very slow onset of type one that is called Lada and latent? Say it again?

Jennifer Smith, CDE 11:38
latent autoimmune diabetes of the adult, okay.

Scott Benner 11:41
And I think just for perspective, because I find myself you know, when you go to the internet and you're just like trying to teach yourself something from scratch, sometimes you hit a word and you're like, Oh, yeah, it's latent autoimmune and then you never really think to yourself, what is latent mean? So just for this, it's existing, but not yet developed? Or manifested, it can be hidden or concealed is the definition of the word latent. so sneaky if you want to think of it that way can be sada.

Jennifer Smith, CDE 12:09
It's sneaky. Absolutely. Well, in your immune system is sneaky. Anyway, weird stuff that it does, you know, well, I

Scott Benner 12:15
just got done interview doing that interview with Francisco Leon about to plus a mob. I'm never gonna say that drug name, right.

Jennifer Smith, CDE 12:24
That drug man. Yeah, I know. It's like a bunch of letters that look like they were thrown against the wall together. It's just

Scott Benner 12:29
it's funny. I can't say it off the top of my head. But when I'm looking at it, it makes complete sense to me. But I'm, you know, I'm still stuck in his descriptions of autoimmune disease in general. And it's like clouding everything I'm thinking of today. So

Jennifer Smith, CDE 12:46
I can actually I got something similar. When I went to a conference, it was probably, it's probably about three years ago. Now, I attended two or three workshops on gut, micro biome. And the research in the conferences were specific to diabetes and what they're really looking at in terms of like, the term muscle use, loosely used, I hate to use it, but like leaky gut type of issue. And what that really does in the potential for somebody who is like got a sensitive immune system already like that turn on factor. It's almost like a light switch that just gets like flipped on once. There's something there to cue in that response.

Scott Benner 13:31
So in the thyroid episode, Dr. Benito starts to kind of talk about a little bit of there's like, there's this barrier, and and I was like, okay, but, you know, anyway, we've gotten off the beaten path. But anyway, I just, you know, what, once Dr. Leon started talking about, there's a place in Europe where they're now putting dirt in babies bonnets, to give them you know, like, like from farms, because he microbes, he said that we've industrialization, he thinks is the key to autoimmune, that we've cleaned the world up so much that our immune system is just like sitting around board tapping its fingers and like, hey, let's go after this now.

Jennifer Smith, CDE 14:13
Yep, I know is I mean, there's a sense of like, especially in this past year of everything, there's like this renewed sense of like, clean, hyper cleaned, and I like I still like the kids come in and they've got like grungy stuff from the rock pile out in the backyard and like, well, you clearly have to wash your hands, but I'm not too worried that you were playing in the dirt because they're probably really good things in there for you.

Scott Benner 14:38
Yeah, I don't have to dip you and alcohol just make you dirty anymore.

Jennifer Smith, CDE 14:42
Right? Yeah.

Scott Benner 14:50
Huge thanks to Jenny for lending her brilliance to the Juicebox Podcast. Don't forget to check her out at integrated diabetes comm you can actually hire Jenny and she'll help you with your diabetes. Thanks also to all the sponsors that I didn't mention today. And what else, check out the T one D exchange at T one d exchange.org. forward slash juice box. Take the survey, fill it out, help people with type one diabetes help the show feel good about yourself takes a few minutes to do something nice. If you hold on for a second after the music, I'll go over where the diabetes pro tip episodes are. The defining diabetes episodes how you can listen in a podcast player if you're listening online and all the other stuff that new listeners and interested parties should know. So here's how it goes. If you want to check out the Omni pod, the Dexcom g vo hypo Penn T one D exchange touched by type one with a Contour Next One blood glucose meter. I'd appreciate it if you use my links. They're right there in the podcast player show notes. You can also find them at Juicebox Podcast comm where you can type them into a browser. And at the very end of this, I'll leave them if you want to hear them. But I imagine you're gonna shut it off before I say that. But still, I'll put them there for you. Now the diabetes pro tip episodes, for those of you who listen to a podcast player, they're right there. You can just search diabetes pro tip and the word Juicebox Podcast and you're going to get them all. But you can also find them at diabetes pro tip.com. When you get there, you're going to see that they that the pro tip episodes begin at Episode 210 with an episode called diabetes pro tip newly diagnosed or starting over. And then they go on for their

pro tips began back in February of 2019. And there was a new one put up as recently as March fifth 2021. So it's a really great list of episodes that will help you manage your diabetes, the way you hear us talking about it here. And these defining diabetes episodes are also incredibly helpful. Right now the way diabetes pro tip comm is set up. If you scroll down a little bit, you can find those as well. There's also ask Scott and Jenny shows the latest episodes of the podcast. It's all right there. Actually. There's also links to places where you can listen through an app. So I know some people don't listen to a lot of podcasts. And this could be new for them. But you can listen in a free application. If you're on Apple, Spotify, amazon music, Google podcasts, Pandora, any apps that are available on Android, just keep in mind that podcast apps should not cost you money. So my links will take you to a number of apps that are free and work great. Otherwise, you can listen pretty much anywhere you get audio. If you're listening in an app now please like follow subscribe, whatever your app allows you to do. And you will get three new episodes of the Juicebox Podcast every week to choose from, even listen to them all. Listen to some of them. Whatever works best for you. If you're looking for people chatting about management, you should look no farther than the Facebook page for the Juicebox Podcast. It's called Juicebox Podcast type one diabetes, it's a private group. So you can talk freely. Go find that if you're looking for 10,000 users. Now, it's a really terrific place to talk about using insulin, and all the things that come up when you have type one. I'm also on Instagram. I don't do much on Twitter, but it's there at Juicebox Podcast. That's it really, I hope you're enjoying these. I hope they're helpful for you, there's going to be a number of them coming. In the next number of weeks we're gonna do Modi and some other stuff that build off of this initial conversation that Jenny and I had, but I like them to be in separate episodes where you can hear targeted information about one topic. So defining diabetes. I'm a big fan of them. Check them out. Thanks so much, Jenny. And thanks to the T one D exchange for supporting the Juicebox Podcast go to the T one D exchange with one of my links there right there in the show notes of your podcast player or at Juicebox Podcast comm T one d exchange.org. forward slash juicebox. Get there takes about 510 minutes to fill out very simple questions. And the answers help people living with Type One Diabetes, you need to be a US resident who has type one or a US resident who is the caregiver of someone who has type one. Again, it won't take you long, it's incredibly helpful. It's HIPAA compliant, completely anonymous. And you could even panic seven months from now and go I don't want my answers to be in there anymore. And they would take them out if you ask them it's there's no risk to you at all. It helps people with type one diabetes. That kind of help could help you as well as others and it also benefits the show. Other things that benefit the show dexcom.com forward slash juice box my Omni pod.com forward slash juice box Je Volk glucagon comm forward slash juice box touched by type one.org. Contour Next One comm forward slash juice box and I think that is that I think that's everybody. If you have any need for those things, please use my links. And if you don't, don't feel any pressure, maybe you will one day. Maybe you can just tell someone else about this podcast. You know, I'm not saying click on the link, click on the link. I'm saying if you need those things, use my link please. Alright, I hope you guys have a great day. Plenty more podcasts coming next week. Thank you so much for listening. I'll be back very soon.

#454 Touched By Type 1

With founder Elizabeth Forrest

Elizabeth Forrest has type 1 diabetes and is the founder of my favorite type 1 charitable organization, Touched By Type 1!

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or their favorite podcast app.

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Scott Benner 0:00
Friends Hello, and welcome to Episode 454 of the Juicebox Podcast.

Today we're going to be speaking with Elizabeth, who has had Type One Diabetes since she was a child has just become a new mother herself, and is the founder of touched by type one. Today Elizabeth and I are gonna chat about how we met her Foundation, and living with Type One Diabetes. I think you're gonna like it. Please remember, as you're listening that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. were becoming bold with insulin. If at any point today, you become interested in learning more about touched by type one, you can go to touched by type one.org. They also have a Facebook page. They're on Instagram. And generally speaking, there wonderfulness is available everywhere that they are touched by type one.org that's touched by type the number one.org.

This show is sponsored today by the glucagon that my daughter carries g vo hypo Penn Find out more at G Vogue glucagon.com forward slash juicebox. This episode is also sponsored by the Contour Next One blood glucose meter. You can learn more about the meter, and so much more at Contour Next one.com forward slash juicebox links to all the sponsors and today's guests are in the show notes of your podcast player and at Juicebox podcast.com.

Elizabeth Forrest 2:07
I am Elizabeth forest. I have Type One Diabetes was diagnosed in 1999. This is year 22. For me, I am a chief operating officer of a law firm in Central Florida and for fun have run a nonprofit for many years called touched by type one.

Scott Benner 2:26
Because that's what people do when they have the very low impact job like they look for. They look for other things to do in their spare time. How in the heck did we meet? Do you remember? I don't think I do.

Elizabeth Forrest 2:41
Yes, I do. So through the nonprofit through touched by type one, we had a committee meeting for the first ever conference we were going to put on. And one of our committee members who has also been on the podcast, Samantha Arsenault, who was incredible. She said, Oh, you've got to listen to this podcast. And so we're listening. And she said that we need Scott to speak at this first event. And so we reached out and you came to Florida and you spoke at the first event. And here we are,

Scott Benner 3:16
I will tell you that the Sam is somebody I still keep in touch with. And she was on the podcast so long ago that I think her episode only has like two numbers and it's in it she was in the 50s or something like that. And it's still it's still an episode that people use all the time it as a matter of fact, somebody referred me back to it the other day, like I was talking on the private Facebook group to somebody about an insurance problem. And someone jumped into it. Oh, yeah, you have to go to this episode with Samantha, because she has an uncanny grasp of how health insurance works for people. It's it's fascinating how she understands that it feels to me that she just sat down one day and taught it to herself.

Unknown Speaker 3:59
Yes, absolutely. That's what it seems like.

Scott Benner 4:01
Yeah, she's just like, I'm gonna understand this now. She really does. And I still to this day will, like privately, like tag her in something. And I feel bad every time I do it, but I'm just like, I bet you Sam could help.

Unknown Speaker 4:17
Yeah,

Unknown Speaker 4:18
I do the same thing. I we send people to her.

Scott Benner 4:20
And then she just takes care of it. And then I hear back from somebody a month or so later is like, Oh, we got the insulin pump. It's all good. Now, Sam, she fixed it. Yeah. So I have to thank her. My recollection, I have like a couple of like spotty recollections. But one of them was that I chose to rent a car for the first time I was there, because you guys were like getting an Uber and I was like, I don't do that. So by the way, I still don't do that. I'm still the only pain in the ass who shows up at your event and is like, I will get in a cab and you will reimburse me but I am not like I'm not doing this. But I decided to rent a car and I think I put it on myself. I didn't and I took care of it. So because of that I made it like as cheap as possible, and I just remember regretting that the entire time.

Unknown Speaker 5:06
Yeah, absolutely. That would definitely happen.

Scott Benner 5:08
Yeah, the entire time, I thought I really should have just gotten it and

Unknown Speaker 5:13
make it so much easier. Yeah.

Scott Benner 5:15
But your your event grew. And I have to thank you like, let me let me stop for a second and say thank you. And you know, by extension to Sam, I, you were the first people who were like, come to our thing and talk. Yeah. And so that's a risk on your part. And I remember having that conversation back then where I was like, Look, I can do a really good job of this. But here's the thing. I've never done it before. So

Elizabeth Forrest 5:40
Well, what's what's really neat about kind of anything, and everything we've always done is if we don't believe in what we're talking about, or we don't believe, and have tried and tested what we're bringing to the table, you know, what are we doing? And I remember having had type one diabetes, for as long as I had at that point, I can't remember how many years ago that was. But when I first listened to the podcast, and was kind of reading more on the blog, and really understanding what was your concept? I was like, This makes so much sense. Why has no one told me that as hell have I not figured this out yet. And then I told Samantha, we absolutely have to have him at our events, more people need to understand this. And it's, I mean, it's been a game changer. For me. I remember, I think I texted you after my next endocrinology appointment, after I had started kind of being bold with insulin, right. And it was a dramatic change. And, I mean, we'll talk about it, but it played a major part in having a very healthy, very successful pregnancy. And I my agency is still continues to go lower and lower every time and it's the lowest it's ever been in almost 22 years. That's really

Scott Benner 6:57
good. That's excellent. I love that. I remember, I can picture where I was standing in my kitchen. When I got a text from you which and to be fair to everybody unite, don't have some like super close personal relationship. Yeah, we know how to text each other. Because once a year, I come to Florida and I talk, which by the way, your thing has grown and grown the last time I did it in person. I mean, my goodness, it was in a giant place.

Elizabeth Forrest 7:24
It was a wonderful hotel, we had hundreds of people there the my opinion, the best speakers, we could we could have gathered in one setting. And it was such a fun but informative and impactful event. So I can't wait till we can do those again.

Scott Benner 7:39
Do you think I realize you're not you don't have a crystal ball? But do you think it's 2021 or 2022? Before stuff? Like that happens again?

Elizabeth Forrest 7:47
I think for I know for us for touched by type one. It'll be 2022 at the earliest?

Scott Benner 7:53
Yeah, yeah, I don't see trying to squeeze something in this year. Because even if suddenly like if magically, everything was just okay. Which obviously, that's not how things work. Even even if that happened, I don't know how you would put something like that together so quickly. Yeah,

Elizabeth Forrest 8:06
you know, and we're all such in the high risk category. Our lives are impacted by so much already. There's no need to add stress and things we don't even know about. I mean, we're all everyone in this world is learning about COVID-19 more and more every day. So there's no In my opinion, there's no pressure to rush something when our lives are at stake.

Scott Benner 8:27
At this point, after putting this much effort into helping people with type one, you don't want to your your long lasting feeling to be that Elizabeth was the one that figured out if you bring 300 people to type one together, they all get COVID and dropped it right.

Unknown Speaker 8:39
I don't want to be that person.

Scott Benner 8:41
That's that won't look good on your tombstone at all. No, definitely not. So I appreciate being you know, being patient with it. I and I tell you 100% whenever you start it back up, I'd be thrilled to be there. Awesome. Yeah, absolutely. One of the not one of the it's the best event I've ever been to. So thank you. No, it's terrific. Anyway, so you are how old when you were diagnosed?

Elizabeth Forrest 9:05
I was 11 years old. Hmm,

Scott Benner 9:07
you're definitely not 11 anymore. You said 20 years. So you're 33

Elizabeth Forrest 9:12
I turned 33 this year later in November. Yep.

Scott Benner 9:15
Is anyone impressed that I was able to put the 22 above the 11. And in my head, add to it one and two and one that quick? I'm not

Elizabeth Forrest 9:21
a math person myself. So yes.

Scott Benner 9:23
Like I said, I'm always like joking. And then people are like, I am kind of impressed. It's just plus one do it again. But so 33 give it a long time. Tell people a little bit. I know you probably tell the story more than you. At this point. You can probably tell it your sleep. But how did you start helping people with type one like what was the first thing you did?

Elizabeth Forrest 9:43
The first thing I did, I was a very, very, very, very and can't emphasize how much shy child but through the diagnosis of type one and having to be more comfortable speaking around adults and talking about Type One Diabetes for mild Safety. I got comfortable talking more. And I was in a dance program at a local Magnet School in Sanford, Florida. And we had put on a dance production through that school already. And so when that happened through the class curriculum, I thought, why don't we do this again, and invite our friends and family to the school theater, charge a few dollars, and whatever we collect, we'll give it to a diabetes organization. And we have fun in the process. That was the first thing we did. And I know it was a rather large idea at the time, but I was very lucky to have people around me that bought into it. I thought, Yeah, that's a great idea. Let's do it. I mean, I was a kid when I came up with it. But that spun into a huge event, dancing for diabetes is the name. And this past year in 2020, we celebrated our 20th annual show. With COVID precautions in place, it was a virtual shows very different than we've ever done. But it started really tiny all those years ago and grew into this huge production and later, a much larger, more comprehensive nonprofit organization that reaches a lot of people. So the first thing was dancing for diabetes, you did

Scott Benner 11:22
something? That's I mean, literally, from a small child's idea, by the way, anything else you ever tell your parents, they should diversify their 401k? No, I think we need to protect ourselves a little more. I'd like to get you a will data separate one. It is a big I mean, it's a huge idea. Like it's easy to say stuff out loud, I guess is my point like, Yeah, but then to make it happen, is, is a different level of focus and drive.

Elizabeth Forrest 11:52
Absolutely. But again, I mean, I have to give credit to there's so many people involved, and, and the fact that my school principal said yes. I mean, if he could have said no, most people would say no. But he said yes. And here we are. So it's it was definitely a little luck as well.

Scott Benner 12:08
Yeah. And you have to run into the right people on the way. This has nothing to do with that. But when I was in high school, a friend of mine, who was maybe a year or two older than me, told his English teacher one day that he wanted to start a landscaping company. And then he needed 20 $500 to buy a truck and a mower and a trailer to get started. And the English teacher gave him the money. And a number of years later, he had to buy the English teacher out of the business for $25,000. And to this day, the man runs one of the largest landscaping companies in the northeast.

Elizabeth Forrest 12:44
Are you hearing these sounds? No. What's wrong? Okay. Okay, my computer just made a sound. I'm sorry. I wanted to make sure you weren't hearing it in the background. No,

Scott Benner 12:54
I'll bet you If I hear noise, don't worry. Okay. But I just think that I think about that, like, he didn't come like he just be. I mean, he was like an 11th grade, you know what I mean? And he found a partner and bought a truck and turned it into a massive Corporation.

Elizabeth Forrest 13:09
I think that's awesome. It's so impressive. And there's so many stories like that. And it's pretty inspiring to hear those sorts of things. Because then people get ideas if Oh, I can do that, too. And maybe, maybe it's different, because something completely different. But it gives people the idea of you know, what is what is what am I good at? What can I bring to the table? And what can I create for good.

Scott Benner 13:30
And it's so different than, like, now I hate to say nowadays that, that I gotta find a better word than that. But like, you see somebody like, I'm gonna do a thing, like, what are you doing? Like, I got an Instagram account, and I'm gonna change the world. I'm like, Huh, I don't think you're going to. But that's not how all that works. You have to, I wish people would never understand probably the level of detail that goes into to something like that. So tell me a little bit about like when you set up, you know, when you know, how soon before I show up in Florida? Do you guys start thinking about it? for that year? Oh,

Elizabeth Forrest 14:03
gosh. We started a year in advance on on our conference on the show. In and those are things well, the show we've done it 20 times so far. So it's something that's relatively turnkey for us other than COVID throwing a wrench in but even when we have done a good job of creating a pretty good template, we still start a year in advance of thinking and brainstorming and what more can we do? How can we make it better? How can we reach more people? So minimum a year in advance?

Scott Benner 14:35
You do constantly have that feeling? Like Like, the way I describe it for me personally is excuse me what once you once you see that you have a thing, whatever it is that idea or a thought or something you can hold in your hand that make someone's life better. The next thought is how do I reach more people? Yeah, right right away. it's it's a it's a it's a burning feeling inside isn't it?

Elizabeth Forrest 14:58
It is Yeah. Because I know that there's, there has been so much productive positivity through through what we do. And it's like, you know, there's so many people that don't have access to, to really great resources or information, let alone the programs that we can help them with or the people we can connect them to at the very least. So it's we're constantly thinking, how can we reach more people? And how do we do it?

Scott Benner 15:23
Yeah, it's, um, it's a driving force behind me. Like, I always just think as long as the feedback is coming back from the podcast, the way it is, it's it's incumbent upon me to find more people to at least give the opportunity to hear it like I don't exactly I'm not trying to force it on anybody. Right. But they should know, like, because you said something earlier, like, why would know, like, Why is no one ever told this to me? Which is, is is insane. Because, you know, a couple of years ago, I don't know how your health was prior to the podcast, but it sounds like it got a lot better.

Elizabeth Forrest 15:59
Yeah, I mean, it was I would say I was average, and for being in this world so long, it shouldn't be average. It should be better. You should learn more along the way, but it was there wasn't getting any new information or any new help. I was also looking for it and so that I think that kind of comes with diabetes burnout at some point, you know, you get kind of in a point of being settled and Okay, and I'm getting by, but I was approaching a point in my life where I was thinking, Okay, how, how do I get better? How do I make this better? I talked to people every day, all day about type one diabetes, I need to be on the top of my game. So it was timing for me.

Scott Benner 16:54
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If I gave you a simple choice between having an accurate blood glucose meter, and one that wasn't as accurate which one would you choose? Well, I think you're right I couldn't hear you. But I think you're saying Scott I would take the more accurate blood glucose meter this seems like an easy question. And it is also easy could be getting that Contour Next One blood glucose meter head to Contour Next One comm forward slash juice box when you get there, you're gonna see big words that say, What do your test strips really cost you? Maybe too much. Insurance may not be the best way to buy test strips. Find out if contour next test strips over the counter might be cheaper. Can you imagine cheaper? How much money can you save? Go find out at Contour Next one.com forward slash juicebox. While you're there, you can look into the possibility of getting a free Contour Next One meter by clicking on the meters and strips savings link where you will also find out about their test strip choice card. That's right, the contour choice card. There's a lot to find out here at this website. I would like it if you go take a look. When you go use my link in the show notes. Contour Next One comm forward slash juicebox. This meter is going to be easy to carry. Easy to hold in your hand. It's going to have a bright light. When you're using it the dark. It's going to have an easy to read screen. There's an app that you can connect to your phone to use it to give it even more features or you don't need to use it with the app. That's your choice. It's the bomb diggity, the bestest meter that Arden has ever used. It's also the most accurate one that we've ever had. Contour Next One comm forward slash juicebox g Volk glucagon comm forward slash juice box and of course, even though we didn't talk about it right here, because we're talking about an all episode long, let me just throw in touched by type one.org go find out what Elizabeth built, but first, finish listening to how Elizabeth built it.

I feel like I should be telling you something here. top of my head. I like submarine movies. I don't know if you do or not but I really do. My favorite modern one is Crimson Tide. I think

is the idea of talking about management directly? I'm not saying that I've, I'm genuinely not trying to say like, I came up with something, but I'm, it's uncommon, like I've found it in the space to be uncommon. I think that i think that that's part of the reason why the podcast excelled, is because I felt like one of the places that people were lacking was they would always tell you like, Oh, yeah, I know, it's hard to have diabetes, or you know, I have burned out, you have burned out, like, it was always a lot of that, like, here's what's wrong. And let's all commiserate a little bit. So we feel like we're not alone, which I genuinely feel like is a is a massive value for people. But I always thought that the people who were doing well, like who really had it, like kind of dialed in. I never, I never saw people like that. But I couldn't imagine that they didn't exist. So how come they weren't out in this? If there's a space? Like, why not be in the middle of it and ring a bell and tell somebody? So I just don't know, that doesn't happen more?

Elizabeth Forrest 21:12
Yeah, I don't know, either. And, you know, one of the bigger things for me with being bold with insulin is, I think it really opened my eyes to the fact that I could be in charge of my type one diabetes, and I could think outside the box, and I could be ever evolving. And I shouldn't be settling for what I've was told 1015 years ago, and still trying those same things and seeing the same results. And I think it was kind of like an eye opener, a light bulb went off of Oh, I can do this differently. And up until that point, no one or nothing out there led me to think that i think that that's a huge part of everything you do is just opening your eyes that you can think outside the box.

Scott Benner 22:01
Yeah, I've just I don't know another way to say it. Like it wasn't on purpose. Meaning like, I, I always did look at the space and think, I don't know why more people aren't just saying what works like I was I started seeing and I'm like, I'm gonna say it. But I think it's more. It's something that I can for myself, trace back in my whole life. Like if you were to come up to me when I was eight years old, and say, you know, Scott, this is my friend, Jim. And my dad was introducing me to someone and then Jim ended up being an idiot, or an ass or something like that. I would not curtsy to Jim because he was older than me. And then my dad would pull me aside later and say something like, you know, you got to be respectful. He's older than you. And I always thought to myself, like, why does that matter? Right? Like, why? Why? Because he's older than me. Do we have to pretend he's not a dumb ass? Like, like, I don't I don't get that part of it. Right. And so I've just never really felt like, I don't think that I live in a space in my head where you telling me this is as good as it gets? And I just go okay. Yeah, you know, that's great. Yeah, I just feel like what's fight back against it and see how far we can beat this thing back. And around diabetes. You know, I really do kind of believe and I hope, I mean, I guess I should knock on some wood. I hope I never find out. But I don't know if I would have gotten type one. If I would have come to any of these ideas. Or if I would just be another person kind of lost in the sea of average I'm getting by this is okay. Hopefully, like that would have been good luck. You know, I think I think it was because it was for Arden. And I just was like I can't let her live like this, you know? Right.

Unknown Speaker 23:37
Right. Well,

Scott Benner 23:38
anyway, I appreciate you having me down there. That was a really big deal for me. Because, you know, someone said, Look, we have a thing and this guy saying something reasonable. And it was it wasn't easy, right? Like, let's be honest. Like I stand up in front of a group of people. And I say a lot of things to them that they've never heard before. Yeah. So you I can't imagine there wasn't a little bit of hand wringing on your side real like, somebody stand in the back of the room. Make sure he doesn't say something.

Elizabeth Forrest 24:06
Well, I definitely set upfront for your session, because like, I need to hear it. I need to know what's going on. And I loved every minute of it. Great. That first one? Yep.

Scott Benner 24:15
But honestly, had I gone wrong? Was there like a hook on a long pole that was gonna yank me off?

Elizabeth Forrest 24:20
No, I had a lot of faith in you. There was no backup plan.

Scott Benner 24:25
So I get a text one day from you. And it's, I think you're telling me that you're in the parking lot of your endocrinologist office, and you're telling me about your a one c? I'm never going to forget that. Because after we kind of went back and forth real quickly, I'm not good at those conversations. I don't think cuz I'm always like, like, there's a little voice inside of my head that goes Yeah, well, you've just probably Pre-Bolus to get your basil right. And it's not that big of a deal is a good job, you know? And so I feel like I'm bad at those conversations, but it made me smile. I thought it was really terrific. And then you know, When the text conversation feels like it's going to end, but you get one more, and I got this one that said something like, if you remember, you'll tell me, but it was sort of like, never tell my husband that I told you this before.

Elizabeth Forrest 25:11
Yeah, I think so. Because normally I'll leave and I'll tell him and yeah, I told you first, you're the first to hear it

Scott Benner 25:17
really stuck in my head. And first of all, it was it was, it was heartwarming, like, I was like, wow, like, I did, like, here's how it feels like, if you're going on, like I did said, or something, something that led to a person who I know, you know, professionally, to reach out to me personally and say, Hey, I just want to let you know how this is going.

Elizabeth Forrest 25:37
And well, I mean, you know, this is someone with type one, it's just, it's so impactful to have finally found something that makes sense, right. And it wasn't overly complicated and wasn't very involved. But it just it took some a new a new approach to thinking about it. And it made a huge difference in my health, which, obviously, our health affects so many things. But it was just like, I don't even know how to describe it. But the feeling of having had Type One Diabetes for so long at that point, and something new coming in and fixing it. There was just, it was great. And I just was so appreciative that the podcast is out there. The blog is out there. The information is out there. You're out there doing all this and trying to reach as many people because I'm healthier today because of it. I'm healthier today because of our Dan essentially. Yeah,

Scott Benner 26:32
I I try to tell her sometimes, but she's still not old enough to. She's still 16. So she's like, Yeah, tell those people they're welcome. And oh my god. I like when people are like you should bring her to an event. I'm like, Yeah, I don't think so. Like, that's what you're looking for. But really try to imagine my sarcastic like wit inside of a 16 year old girl who's not alive. Yeah, who didn't raise a girl with Type One Diabetes, so she doesn't have any of those soft feelings that I have. So funny. It's um, I'm forever gonna wonder. And I'm going to try to help her as long as I can, obviously, but she grew up in a world where, like, she just doesn't have in her mind. She doesn't have any of the things holding her back that other people who grew up with like, I'm not kidding you. Yesterday Arden's I say the words Arden's period too much on this podcast. But artists definitely premenstrual right now. And she got on her online schooling, she comes downstairs, and she says, I'm not hungry. And I'm like, okay, but I'm very hungry. And I was like, okay, but nothing in the house seems right. And I was like, Oh, god, it's gonna be one of these, like, you know, and I was like, so we're going through everything. And she finally says, here's what I want to do. And I'm like, okay, she goes, I want grapes. a banana. And chicken is like, yeah, and she goes, Yeah, and I'm gonna have chips with it. And I was like, Okay, now, health issues aside, like with this food choices. I never thought, well, she can't eat that. And more importantly, to me, she never thought I can't eat. I can't do that. It never occurred to her. And I guarantee you, she's had diabetes since she was two. If she was 16, and we didn't figure out the things we figured out, she would have those thoughts, and then swallow them. Oh, absolutely. Like, absolutely, yeah, I'm gonna have a banana and grapes and chips and chicken. And then she thinks, no, I have diabetes, I can't do that. And I think that's where the, where some real problems come in, like, Oh, yeah,

Elizabeth Forrest 28:42
I mean, I, I think that I understand it now. And I look at it differently. But for the majority of my life, food was medicine. It was a, it was a tool that I had to use at different times for different reasons. And that leads to a whole other set of issues and topics to or could, I should say, but But yeah, I mean, you know, it's, we talked about this amongst ourselves that touched by type one, that, you know, it's a blessing and a curse to be diagnosed so young, because, you know, with the, with the right family and the right resources and information, by the time you're more aware of what's going on around you, it's kind of second nature, but at the same time, you know, you don't want your kid you don't want yourself to have had Type One Diabetes for that long, or to have it period. So, you know, I can I can remember times without type one, but unfortunately, most of my life is, is with type one.

Scott Benner 29:41
Yeah, I the only time I can feel myself, I'm gonna use the word frustrated, but I don't mean it that way. When feeling frustrated with an interaction between Arden and diabetes and food, is when I see her go, Oh, nevermind. I can't have that right now. I feel like I let her down that she thinks that and we don't like it. We are very obviously not limiting with one sheets. Also, I think I should be clear Arden doesn't have potato chips and bananas and chicken. Like for lunch usually, but it just, you know when those those hormones hit people, and when I say people I think I mean women. It's fascinating. Like she's like, you know, it sounds good and like, that doesn't set okay. Yeah. But But if I see her say like, oh my blood sugar's you know 150 I can't have that. And then I'm like, are no, no, you can just here's what we have to do if she goes no, forget it. That makes me feel sad. And I think it comes out as frustration because I'll stop. And I'll say, look, we can do this. Like, I don't know, like, Alright, your blood sugar got to one. I know that sounds crazy to some people, but like are your blood sugar got the 140. And it's not where we want it to be. But we're gonna make a big Bolus right now, I'm going to crush that 140. And I'm going to use it as a Pre-Bolus. And we're going to go right into the food. And you can do this, like you can be eating this food in 10 minutes. And most of the time, she'll go for it, but it's when she says no, I don't want to wait. That I'll say, well, then don't wait. Let's just do it, then. Like I like I would rather her blood sugar be higher than for her to have that thought.

Elizabeth Forrest 31:10
Sure. Yeah. That's, that's the best way to approach it.

Scott Benner 31:14
It just makes sense to me. I can't believe that. I even have common sense. But around this I actually, actually. So what are you trying to do with touch by type one? Like, what's its goal? Because when I do like, Listen, I know it's no secret anybody's listening. You buy ads on the podcast, I think after I was down there, the first or second time, you reached out to me and said, I want to find out if I can get an ad on the podcast. And I was excited. I tell people all the time, I genuinely mean it. There are a number of advertisers on the podcast, I feel 1,000,000% comfortable standing behind every one of them, whether they're a device and what they do, or if they're, you know, a medication and how they work or an organization and what it does. But I have a hard time telling people what because I'm always just like, just go check it out, you'll see like, they're helping people find out. But what would you you know, what's the longer idea of what touched by type one is,

Elizabeth Forrest 32:12
so it really is connecting with people that need us. And that's what it comes down to at its core. We've all found through our different experiences, that different programs or services or resources weren't available at different times or for specific people. And so we just want to eliminate all that all that and, and get the information out to those that need it or that wanted, I should say. And if if we can connect with one more child or one more adult that was just diagnosed with diabetes, and give them the tools and resources so they can independently thrive with diabetes we did. We did everything we could have ever imagined. And so it's really just connecting with people so they can have a good experience. So they don't have to think their Type One Diabetes diagnosis is going to limit them from anything. And I it's how I've lived my life is I don't let Type One Diabetes get in the way. It's it's a huge part of who I am. And it's led me to a lot of interesting experiences and people, but it does not stop me from anything. And I want that for everyone. I want everyone to go after whatever it is they want. I like

Scott Benner 33:22
it. It's not when you talk about it, it doesn't feel like a corporate pamphlet. I don't know, I don't know. Just like we're gonna do good things for people who have type one diabetes.

Elizabeth Forrest 33:33
Yeah. And we're we're, we evolve every day. I mean, it's, we have such a great group of people that are connected and, and part of different committees and on our board. And we always talk about Okay, what more can we do? Like I said before, but what's what's not happening in our community? Or who are we not connecting with? And how do we do that? And what information is missing? And we're constantly listening to people in our communities to find those answers out. And all of our programs are because of that, because we were listening to what other people needed, right? Because we all have our own experiences and have different needs. But that doesn't mean those are the same for everyone else, either. So we are constantly evolving and changing to make sure that we're providing what people want. Because if they don't need what we're offering, or what are we doing?

Scott Benner 34:26
Yeah. And if and if I don't offer the thing that they want, I hope they can find it somewhere else. I have to say I've, I've taken that. So I started a Facebook page at the behest of people listening. So I always had like a public page where I'd just be like, there's an episode out or you know, that kind of stuff. But I'm not very social media focused. To me, the podcast is is the thing. And so enough people asked for a private group so that they could find other listeners to talk to and I just thought like, okay, like, What do I care, you know, like I was like I'm making for you. So I built this private group and You know, a builder takes 20 minutes, and you put it together. And I think it's been up, and not for a year even. And there's like, almost 10,000 people in it. And they're just all helping each other. And at first, it made me uncomfortable at first I was like, Oh, no, like, am I? Like, I'm not really sponsoring this. But like, what if somebody says something in here, I don't think is right. But so many people who listen to the show came into it, that it just, it's fascinating how quickly they come to a consensus together, they don't fight. It's it. And I never imagined how valuable it was going to be. And some days I watch it, do things that I know, I don't accomplish with the podcast. And that just made me feel like, wow, like, Look, the podcast made this thing, we've brought these people together, and these people are solving problems for each other. I could not I'm only one person, like I could never have done all this. It's very cool to watch it. Grow. I that's there's a better world,

Elizabeth Forrest 36:03
you you created a community. And and that's what people need. And that's what people want, when they want to kind of take charge and see a better outcome. And one of our board members is always talking about how you know if I could change my daughter's diagnosis to never happening? Sure, absolutely, I would. But look at this great community that we've been a part of, because because of it, it's kind of the silver lining. And so I see see that Facebook page as your silver lining as well. And one of many, but creating a community is so impactful on so many people one that they want. Yeah,

Scott Benner 36:41
yeah, it's so difficult when you're driving the bus to see everything that's going on in the bus like and saying, I can look over my shoulder sometimes and think like, that's really good. But I don't have enough time to, like really dissect it and look at it. I just think it's running well. And that's great. And let it go. I have to be honest, it's something about bringing enough like minded people together on a subject is why it runs smoothly. Because, you know, sometimes there's stuff that flares up in the world that's political or social or something. And you can see for a split second, these people don't have a lot else in common besides this diabetes thing. But look at how they get together on the diabetes thing. Very cool.

Unknown Speaker 37:27
Yeah. Yeah, it is.

Scott Benner 37:29
Yeah, I just I love it. And you're doing it in a it's funny that, you know, I used to think when I very first started, like doing an ad, I always thought like, well, I'm doing an ad for an organization. It's a local organization in Florida. And then the last time we were together, you told me like, I'm starting to, like you started to hear from people outside of your area. And

Elizabeth Forrest 37:52
oh, yeah, we have with with some of our programs, we reach people beyond Central Florida. And so we have people that are connected to us now and have been for a while all across the country. And we connect with people more so in the past year, mostly because of COVID. internationally. Now, I mean, I don't, I don't want to dive, unless there's time to dive too much into some of our programs. But the one I will say is our D box program is a free kit to those recently diagnosed, has a ton of information has material samples, products and programs that we believe in wholeheartedly, that are productive and living with Type One Diabetes, but we offer this program for free to anyone that wants one and and we've been able to reach so many people that way and get them this information that they might not have been able to get without this program. And last year 2020 we distributed about 2000 boxes across the country and had so many requests internationally. But you know, we're a we're a relatively small nonprofit organization and to provide something for free right now. We can't do it internationally as well. But we're we're working on something that we'll be able to reach across the globe Pretty soon, which is pretty exciting. So excellent.

Scott Benner 39:14
No, I it's just really, to me, it's it's a it's uplifting, and I will never forget the first time I was at your thing, and there were kids dancing in another room. I'm like I slipped in there for a second. So like I go in, and I realized that I have no connection to dance. I can't dance. First of all, I'm and my children don't dance. I've never been around it. And I walked in. It's a completely new experience for me. And these kids were just they were joyous. Like they had so much life in their face and they were having such a good time and the people who were directing them and helping them. Were having such a great time. And then I really looked at I was like, man, all these kids have diabetes. Like this is really cool. You know? It just really felt great. So I know there are tons of people who love dance. And so I'm like when they you guys have to see their program like I would imagine if you're a dance person, this is just the craziest thing that I started seeing video over the years. I was like, this thing's amazing, like, I

Unknown Speaker 40:15
think so.

Scott Benner 40:16
Like Elizabeth pull this all together from like her house when she was like nine or something like

Elizabeth Forrest 40:22
it has evolved that is for sure. It is not the first show. Our most recent show is far from the first show that was in my parents driveway.

Scott Benner 40:31
It's come a long way. You know, it's funny, as you told the story, I was like, she's not getting to the part where it happened in their driveway.

Elizabeth Forrest 40:38
I always forget to mention it. I don't know why. But I guess I imagine I relate the first show with being in the theater. And so even the first show that was in the theater is drastically different than what it is today. But But yeah, I mean, this show literally did start on my driveway, my my dance class came over to my house, we warmed up, surrounding my swimming pool in the backyard. And when all of the family and friends that were in the front yard lined along our very long driveway with like a grill going face painters, it was this very interesting little event we put together. But my I remember my dance class, warming up by the pool, and then walking from the backyard to the front. And we performed two or three dances on the driveway for everyone that was there is like entertainment. And and that is what led to the idea, along with having produced to show through the school of let's call it dancing for diabetes and put on a show. But yeah, it started on my driveway. It's so crazy to think back to that time.

Unknown Speaker 41:46
You remember how much money you raised that day?

Elizabeth Forrest 41:49
I think we raised like, maybe $1,000 maybe we had we had things like you had to guess how many jelly beans were in a jar. I mean, it was it was so different than everything we do now. But it's really cool that it started that way.

Scott Benner 42:04
Yeah, I would say so. I mean, like last time, we were all together. I thought like this is like this is like walking through Disney World. There were a lot of like, there's just a lot of people there. And there were people coming from distances. And yeah, I have to say like I do a fair amount of speaking things. And that's the thing that like always shocks me is that when somebody says they traveled a distance to get there, I just think wow, like that's how desirous they are of like camaraderie community help, whatever it is they're looking for. It's so valuable, and at the same time unavailable to them that they that they can make a day travel a distance, you know, spend the night in a hotel, sometimes I've seen people do

Elizabeth Forrest 42:45
yeah, I mean, not not 2020. But in 2019, we learned of a family that had traveled from Connecticut, to come to Florida, in Orlando, to to attend our show downtown Orlando in a theater. And I want to say they heard it on the podcast. And maybe I'm just connecting the Northeast with class, I don't know, but I'm pretty sure the connection was there. And that was that like blew my mind that they traveled that far. And then in 2020, when we basically when I made the decision to still ensure dancing for diabetes would continue but do it safely. Through a virtual show, we had people able to tune in again for free from anywhere in the world. And we had people viewing from 22 different countries and until we reached more people and watching our show production than we ever have. And that was really cool. And you know, it's another positive that came out of 2020. But it was incredible to me that so many people got to see the show, which is a baby of mine to an extent, and that we reach so many more people than we ever have. And that was just really cool.

Scott Benner 44:02
It's just the greatest thing. I did an online thing last year for like a small group is like 30 people. But they were all in Japan. And I was just like, I'm like, how is this happening? Like, I don't know that people would understand completely but I didn't start a podcast and go you know, what I'll do is I'll start a podcast about my ideas around type one diabetes, and soon it'll just be listened to all over the world. Like you don't think that's going to happen, you know, and I interviewed a woman recently he is living in Israel. Oh geez, I just didn't I just interviewed a woman from Iran recently. Australia, New Zealand like those like the obvious places like, I can't believe how big the podcast is in England, and stuff like that. And when that happens to me, like there's a moment where you're just like, Oh, it's working and that like the the business part of it feels good. But then you really stop and think that these people like who are living a life similar to yours. My daughter's there everywhere. And you know, you're still only reaching the ones that can be reached like there are plenty of places in the world that people have Type One Diabetes right now. And they don't have internet access, or they don't have a cell phone to listen to this with or the time or again, how would they even find out about, you know, about touched by type one? Or about a podcast or something like that, right? I just Yeah,

Unknown Speaker 45:22
no, I am,

Unknown Speaker 45:23
I

Elizabeth Forrest 45:24
can tell you with 100% certainty that when I was a middle school student, I never imagined having that show, whether it was on my driveway or the school, that it would ever evolve to anything near as close to what we have today. And I always tell people, if you have an idea, you know, as little as it might seem, because that seems really small to me at the time. Do it, try it? If it works, it works. If it doesn't, you tried, and you never know where it's gonna go. But yeah, I definitely understand your thought of never imagining how big it would grow. I can definitely relate.

Scott Benner 46:01
What is it like, personally for a second, like taking the organization out of it and everything? Does it feed you in a certain way?

Elizabeth Forrest 46:09
Oh, absolutely. It is. It's kind of, it's a hobby for me at this point. It's fun, it inspires me because I get to see whether it's daily or on a monthly basis how productive and impactful it is. And it just it really just brings me so much joy, to know that we're doing something so good, despite something so awful. So yeah, it touches me personally, all the time, when I take a step back and reflect on everything.

Scott Benner 46:39
Yeah, I can't imagine it wouldn't. I mean, I can tell you that at the beginning of the episode, where you said that you felt like what you learned on the podcast, like led to a healthy pregnancy? I don't that that makes me feel like I always like it makes me uncomfortable. And then so I joke about it. And I'll be like, you should have named your baby after me. But that's really just to deflect from the fact that I have a lot of emotions around it. And I I don't even know how to respond to something like that. You know, but what what do you end up having a little boy, right?

Elizabeth Forrest 47:09
Yes, we have a little boy, he is just about five months old now. So it's been quite an experience and journey so far, a wonderful one. But when I could have never really fully prepared for

Scott Benner 47:22
what would my name have had to have been for me to get a baby named after me? Because my name is things. That's the problem, right? Like, no, it's

Elizabeth Forrest 47:31
not a bad name at all. And I mean, this is going to sound like an excuse. But we did name our son after my husband, his father, who's also named after his father. So he's a third. So we were kind of keeping it in the family that makes you feel bad. I

Unknown Speaker 47:47
mean,

Scott Benner 47:48
you know, maybe I got a note from somebody recently that said, we're not going to name our baby after you. But I think they're going to name their pet after like, my last name, but I was like, I'm totally taking that.

Elizabeth Forrest 48:01
That's nice. I mean, pets are part of the family. So that's a big deal, at least to me,

Scott Benner 48:05
I honestly was thrilled. I was like, this is a major accomplishment for me. Someone's dog is named with my last name. I was like, I've winning, dammit. But now it's just so it described to people a little bit like you've had diabetes for a good long time you had it? Where are you? Like you said, you were doing just Okay, you've had it where you were doing better? And you've had it where you're doing better, and you're pregnant? What's it like to go from? Like those? those segments? I guess? Like, what's it like living at? Okay, first of all, what's the downside?

Elizabeth Forrest 48:38
You know, it's, it's kind of, for me, it was I felt like I was in a rut. And I felt like, I couldn't see the light to get out of just being okay. And in every other aspect of my life, I'm not someone that just settles for. Okay, so that was really frustrating for me. But I will say that, getting out of it and finding resources and a way to make myself better. I feel like that was almost like a reset button, and kind of a new chapter in my diabetes life. And one, there was a point years ago, someone asked me the question, does diabetes get easier with time? And I said, No. And I said that, throughout my life, like everyone's life, we were constantly evolving and changing and growing. But there are things that happen in our lives that force us to change and to grow for, for better or for worse. And, you know, when you're a teenager, and you have to learn how to drive a car, and then you go off to college, you're dating, you're interviewing for jobs, I mean, diabetes has a play and all that. And so learning those things are new and challenging, but then throw diabetes into it. And that's a whole other layer of a new challenge. And so diabetes Constantly part of the mix. And so that's why I say no, it doesn't get easier. You might learn some things along the way. But then there's more to learn in life itself.

Scott Benner 50:10
I found for me that it didn't, it doesn't get easier, but I got so much better at it, that there are times when it can feel easy. And I'll take Yeah, you know,

Elizabeth Forrest 50:20
definitely I agree with that,

Scott Benner 50:21
I'll take that as a win. Like, I it's always gonna be a grind, right? Like, it's always gonna be the same stuff over and over again. And there are definitely days where you're just like, oh my god, like, How could my infusion set have gone bad? Like right here? Like, like, right, you know, like, I'm looking at art. And I'm like, now like, not now like, Oh, my God, all right, like, but you don't say those things out loud anymore. And eventually you don't feel them. You just see the you know, oh, the pods out of insulin, let's change it. And you do it. And you're right back to it again, and you just go back to life. It doesn't, it doesn't take a big chunk out. But I'll tell you, the IRS prior like a long time ago, just something like a you know, a pump change, or something like that. You're just it felt dreadful, like ah, and I and I don't feel like that anymore. And I don't think Arden does either. And it's not because she got accustomed to it. I think it's because we chose to think about it differently.

Elizabeth Forrest 51:18
Definitely, you know, and I was just going to say, I don't know if it's the same for you. But my kind of thought process on it all has been that, you know, diabetes throws curveballs. And you can do the same thing one day, and it's different than next. But those moments where I have to wake up in the middle of the night and change my sight because something's not working. Or today, my salad spiked my blood sugar to this amount, those sort of moments where you have to rethink the next move. Even though everything up to that point has worked. I feel like I've been able to apply those sort of lessons and thoughts in my non diabetes life, if one exists, if one could exist. But whether it's work or back when I was in school, it's it kind of teaches you an interesting life skill of adapting. And I always try to find those sorts of tools and lessons when I'm especially working with the kids with diabetes in our dance program is, you know, this is awful. This is horrible. I wish I didn't have diabetes. I wish you didn't either. But we have it. So what can we do in a positive approach to live better with it? And, and part of that is your mentality and thinking, Okay, this bad thing just happened? Well, how can I make it better? And I just I think it's been an interesting approach for me coupled with that your tools of living better?

Scott Benner 52:39
I have to say that, at one point, I'm always kind of evolving how I think about it. And at one point, if you said to me, like, Scott, I only have a couple of seconds. Like, what's the secret here? I would tell you got to get your basil, right? You have to learn your Pre-Bolus time, you have to understand the impacts of different foods. And I used to stop at that. And now there's a fourth thing, and I think it's that you have to remain flexible. Yes, absolutely. It's it. There's an agility that's mental, that you You just have to embrace. And it has to be that dammit, a salad has never made my blood sugar go up before but this time it did. So stop thinking about the salad. Now start thinking about the number How do I fix it without causing a low do that thing? Move forward? Exactly right. Just like that not not stand around for three hours going? This doesn't make any sense. My blood sugar shouldn't be high. This has never happened with salad before. Oh my God, is this going to be a thing that happens with salad now? Like you can't like you can't fall down that rabbit hole. Because the truth is the next salad you eat, it's probably not going to happen that way.

Unknown Speaker 53:43
And so exactly,

Scott Benner 53:45
right. Right. And and if Listen, if you want to try to dig into why one salad in six months, major blood sugar pop up, I'm sure you could figure it out eventually. But in the moment that is not valuable for you it is it is absolutely the opposite of valuable. it's maddening. And so you know, stay flexible. It's get your basil, right? figure out, you know, the lead time your insulin needs to work, and it's going to be different from one meal to the next, you know, to the next. And then you know, learn the difference between 10 carbs of rice and 10 carbs of watermelon and etc, etc. And then stay flexible. Because when we started really talking about variables, like when, so when I made the pro tip series, I started up I got Jenny side privately and I was like, Jenny, listen, like I want to take these ideas I talked about on the podcast, I was like I make them a little less scattershot. The way I talk through them. Like I think they should live somewhere in the road episodes. Could you come on and like, like be my equilibrium a little bit so I don't get carried away talking? And she's like, sure. And then she started getting involved. And I was like, Oh my god, she's like, brilliant at this. Like this is fantastic. And so at one point, I was like, Is there anything I'm not talking about that you think I should and she's like Well, I'm glad you asked and Gina and she gave me a couple of ideas. So some of the pro tip episodes are our journey building on to the pro tips as well. And the one thing she said is like, we have to talk about variables for people. Because some people will, you know, you see it online, sometimes they'll make this list of things that you know how people like to be like, like, Oh, my diabetes is just easy, I count my carbs. And I do this except if this happens, and then they make this long list of things. And the inference is that there are so many variables, I couldn't possibly know them all. And that's true. But I think like, what's the next part of that sentence? And I think is, so you don't really need to know them all. You need to know what to do when they pop up. Exactly. Right. And you need to know like this, like, quick, you don't want to have to sit around for an hour rain, you know, figuring it out.

Unknown Speaker 55:48
Yeah, you know,

Scott Benner 55:50
you said something earlier that I wanted to loop back to for a second if I can, you are a go getter, like you are not a sit still person. And you know, I think that, you know, you said earlier, you're an attorney and you run a nonprofit, like, this is obviously not a person who's, you know, who's just happy to like, sit around for a whole Saturday afternoon watching the sun. So I really want to ask, like when your blood sugar wasn't doing what you wanted it to do? Like, how does that impact you personally, when that's your personality?

Elizabeth Forrest 56:22
Well, let me say this first. I'm not an attorney, I am the Chief Operating Officer, I run the firm. I've been at this company almost 10 years. So I manage attorneys, but I'm not one. And a lot of people think I am because of my position. So I just want to clarify that. But to go back to the question. So. And the question is just because I lost my train of thought on

Scott Benner 56:44
when you're a person who does what you do, right? So and you're a person who is very driven inside? And and and you still have results and things like that when

Unknown Speaker 56:55
you're

Scott Benner 56:56
putting that kind of effort into diabetes and not getting those results back. How does that impact you psychologically? I

Elizabeth Forrest 57:01
guess? Yeah. So I would say how it affects me now is definitely different than how it affected me 678 years ago, so 100% it's frustrating, because I am absolutely someone that goes after something gets it done, I have goals, we're going to reach it. Whatever needs to happen, we're going to find a way to get to that. So when you use that same thought process for diabetes, which will do whatever it feels like doing, I remember one one comment my endo asked me years and years ago, I have a great relationship with Him been seeing him a long time. But he asked me one time, you know why your blood sugar is so high. And my immediate response without thinking was I have diabetes of type one diabetes. That's why they're so high and it does whatever it feels like. And he laughed. But my, my thought process and now is that I just keep trying something else. So I'm frustrated. But if my blood sugar's high, then I'm going to give myself another little bit of insulin, I'm going to go grab a water, I'm going to set a timer to look and see in 510 20 minutes, has it come down at all? Or I'm going to look at my site. Is that okay? Did I eat something weird today? I mean, these thoughts are constantly going through my mind of what can I do next, if this doesn't work? And and so I find myself being less and less frustrated, because I kind of have the tools in my toolbox now that I never did before. of, Okay, this didn't work, well, maybe this will and eventually it works. And if it doesn't, the next day comes along. And it's a whole whole other set of challenges with diabetes. But I think that I just I looked at my toolbox a lot. Yeah,

Scott Benner 58:51
I that's terrific. It really is I use you just were talking about like setting a timer and looking back in 10 minutes or so. There's so much of I did this I made a Bolus here. I know what I want to happen and what I expect to happen. If that doesn't happen. It's not happening. So I have to do it again.

Unknown Speaker 59:10
Right. You know, I

Scott Benner 59:11
have to I have to re address it. I know people be like, Oh, well you're stacking insulin. And I always say like, you know, it's not stacking if you need it. That's bolusing you know, like there's a difference. There's a difference. It's a theoretical, like you have to really kind of pick through it like you can't just keep giving yourself insulin over and over again because it will jump on you at one point yeah,

Elizabeth Forrest 59:30
of course do the wrong well one thing that I think scares a lot of people a definitely scared me and something I quickly got over and listening to your podcast is if if you can fix it with a juice box or Gatorade in my case or a fruit snack, do it. What's the worst that's gonna happen? It's gonna drop really low, but I'm monitoring it. I'm not ignoring the fact that I've diabetes. So if I can fix it with something nearby, I'm going to keep giving myself a little bit more insulin with certain amount of time in between, because because I can't and so that when I understood that concept, I definitely saw a little bit more results to have of not being scared of below. I was always terrified of lows I still am, I don't want to get low in the middle the night and not realize it. But knowing that you don't have to be all the time is really empowering. And then I will just say because I know that a lot of times even listening to the podcast and listening to other speakers, sometimes it could sound like the other person knows exactly what they're doing. I right now my blood sugar is is high. I'm 171 Today has been so challenging. I couldn't tell you why. But I have right now my agency is about 5.7 when I was in a few weeks ago, so not every day is perfect. But most of the time, I'm in a certain range. And so I think that's really important for other people to hear. Because when people are doing well, they don't necessarily talk about what's not working or what's bad or that because people want to see the good, but it's really important to know that you don't have to be perfect to be better at diabetes.

Scott Benner 1:01:13
I try to tell people all the time that at least twice a day Arden's blood sugar will make it to 160 sometimes 180 or something like that. And her a one C is still in the mid fives consistently. Yeah, the difference is the little pieces like you've been talking about for you know, throughout the whole hour. It's it's not like just going Oh, my blood sugar's 180. And then not thinking about it again. It's Oh, it's 180 I'll bring it back down. You know, not that I wonder blood sugar, it'll be 180. I'm not saying that. I'm saying that if it should happen, you can't just go Okay, well, diabetes, and then walk away and leave it there,

Unknown Speaker 1:01:45
you got to do something, you have to do

Scott Benner 1:01:46
something about it. It's just it's a it's not a difficult concept. But there's something about the way standardized diabetes education is has been built over the years. That makes it feel like oh, it went up, it'll come back eventually. And I used to think, well, maybe it's different now. Because, you know, glucose sensing technology, like, you know, Dexcom, and stuff like that. But now I wonder more if it wasn't the just in the past, because that stuff didn't exist. And the idea was, well, if he's has too much, you're gonna burn yourself out. So don't test too much. Just test. Count your carbs, give yourself in some wait three hours check again, correct that if it's high, you know, if that whole thing didn't just come from the idea of, you can't, the concept of Well, you can't really control it anyway. So you might as well not burden yourself with it. You know what I mean? And if somehow that doesn't end up morphing into the direction that people get current day, that really isn't as valuable anymore. So I don't know. Like, I just think that at every one of these events, you know, I go to I eventually will meet one family whose kids blood sugar is just insane. It's like over 400 most of the day, and you talk to the parent, and they just they don't they don't understand why. And I don't see how, as long as that exists in the world, anywhere. I don't see how you and me and anybody else who has a voice that's valuable. wouldn't try as hard as they can to reach a bunch of people. Absolutely.

Elizabeth Forrest 1:03:22
That's exactly what we're all doing. Yeah.

Scott Benner 1:03:25
So So watch this, you're gonna be very impressed. It's not written down anywhere. Watch this. If you'd like to do something great for people living with Type One Diabetes, you should check out touched by type one.org and find them on Instagram, and Facebook. I was that it's not bad. Awesome. I can do that in my sleep. Elizabeth. Just

Unknown Speaker 1:03:45
that's so cool. I wouldn't. I wouldn't. I wouldn't be surprised if Kelly wakes me up one day and goes oh my god, fine. I'll go to touch by type on.org Leave me alone.

Unknown Speaker 1:03:54
Fantastic. I

Scott Benner 1:03:54
really appreciate you doing this. How can you have listened for the past hour and not love Elizabeth the way I do? It's not possible. So now follow through good at touched by type one.org and figure out what's going on over there. See if you can get involved. If you can get help. Or if you can help touched by type one.org. And thanks so much to you guys for listening, for sharing the show for leaving the great reviews for helping out so much in the private Facebook group for all the things you do to support the podcast. You have my sincere thanks. We'll be back very soon with another episode. If you wait until after these ads, I'll tell you who the guest is going to be.

A huge thank you to one of today's sponsors g Vogue glucagon, find out more about chivo hypo Penn at G Vogue glucagon.com forward slash Use box, you spell that GVOKEGL Uc ag o n.com forward slash juice box. Go find out about the blood glucose meter that Arden's using that I find to be the most accurate that we've ever seen. Contour Next one.com forward slash juice box. Don't forget to look into the test strip savings program. Find out if you're eligible for a free meter. do all the things that that website offers. It's going to be good for you. Okay, thank you for listening to the two ads. Next episode Jenny's back, Jenny's back, back from space. Yeah, she's

Unknown Speaker 1:05:50
back. Back again. Jenny's back journeys back journeys back journeys back

#453 How We Eat: Low Carb

Type 1 Diabetes, Low Carb eating

Susan has type 1 diabetes and lives a Low Carb lifestyle.

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
Hello friends and welcome to Episode 453 of the Juicebox Podcast.

Hey, I've got a treat for you today. It's another in the how we eat episodes. So going back to Episode 373 was called how we eat vegan cat. Number 400 how we eat carnivore diet with Dr. Paul Saladino. Episode 405 was how we eat plant based Episode 439 how we eat gluten free and today how to eat low carb with Susan Susan as Type One Diabetes and a real passion for low carb eating. This episode is going to outline all of that for you, and much much more.

Please remember while you're listening that nothing you hear on the Juicebox Podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin.

This episode of The Juicebox Podcast is sponsored by the dexcom g6 continuous glucose monitor and you can find out more about the glucose monitor that my daughter has been wearing for the geez forever. She's 17 she started wearing it when my God let me look real quick Hold on. Okay, I'm back that's a lot of googling and searching on my own site but Arden got her first Dexcom on June Fourth 2010 which means that Today is March 15 2001 Arden has been wearing a dexcom continuous glucose monitor for 11 years. Find out more at dexcom.com/juicebox you will not be sorry. Keeping up with the theme from today I look to see that Arden's first Omni pod was delivered on February 2 2009. To our house by FedEx, I have a little thing here that says the FedEx driver just delivered Arden's first supply of Omni pods today. Arden is very excited facial begin her trial period. And then over the next 45 days, we'll make ourselves comfortable with the pump and then do a live sailing test blah, blah, blah, blah, blah. There's a lot that happened back then. February 2 2009 to march 2021. So plus 10 1922 an ardent has been working on the pod for 12 years, you can get a free, no obligation demo of the Omni pod sent directly to you now or find out if you're eligible for a free 30 day trial. like think about that you can either get like one pod to trial on to see if you like it, where you can get 30 days of the dash to actually use for free. Are you kidding me? You should check that out properly to find out if you're eligible for that 30 day trial. Or just get yourself a free no obligation demo at my Omnipod.com/juicebox there are links to all the sponsors in the show notes of your podcast player. We're at Juicebox podcast.com. When you click the links you're supporting the show.

Susan Keuter 3:39
My name is Susan Keuter, cuter than my sister.

Unknown Speaker 3:44
That's how people remember my name. Do you believe

Unknown Speaker 3:46
that? That's how she introduces herself as well?

Susan Keuter 3:48
Absolutely not. Not and she rolls her eyes and she'll hear this and she'll call me she'll say you have to stop saying that. And I live in Arizona, where it is currently 63 degrees to all you winter folks. And I I'm a rock star mom and me, me and wife and a substitute teacher and county advocate and a political badass and type one diabetic for 37 years.

Scott Benner 4:22
Wow. Okay, and we are going to talk extensively about how you eat. Yes, but before we do, I think it's possible that you and I need to make sure we understand our relationship. So here's how I here's how it would not come to a surprise you I would imagine to learn that I don't really know everybody who's on the Facebook page or listens to the podcast or anything like that. Right I do my best to pay attention. And I do start to like the you know, the people's little pictures like I start to recognize them or names or something like that.

Unknown Speaker 4:58
And then they change them right yeah, no, but You.

Scott Benner 5:00
So I know you backwards. And I'll tell you how, like, I first know you as a person who came into the Facebook group, the private one, and was just doing and is doing an amazing job of sharing how you eat with people. Okay, really. And so I'm like, I'm paint Oh, please, it's my pleasure. I'm thrilled you're doing it there. And you don't eat in. You know, you're not eating like a standard American diet, and you do a very good job of talking about it without making people feel badly about it and all this stuff. Oh, I've always been really thrilled with how you do it. And then one day, I'm looking at that little picture and I'm like, happy Damn, that looks like the lady I met in Arizona one. Right. So I am. So I like I kind of blow the picture up a little bit. And then I'm trying to remember so for people who don't go to things to speak, and I'm no like, you know, I do it a little, but I'm not. It's not like I'm out there doing it every day. Era, Arizona was a specific situation for me, because I needed to get back to be at my son's first ever college baseball game. Right. So I got I did some talking in a couple of different rooms that day. And after the last one, they told me like, you know, get down off the stage. You can stand here for a minute and collect yourself and then we're taking you to the airport. Yeah. And so I'm a little disheveled. Like, I'm not gonna lie to you. Like I'd only been in Arizona for probably 24 hours. At that point. I was already heading back to the airport to leave again. It was a long flight. And I get kind of pulled out of a room. And there you are.

Unknown Speaker 6:33
Okay, wait, but I didn't pull you out. No, no, someone

Scott Benner 6:35
else pulled me out. Okay, thank you clear Susan did not like me.

Susan Keuter 6:40
I was not trying to kidnap you or not at all.

Scott Benner 6:43
I believe Vicki was like leading me out.

Unknown Speaker 6:45
Vicki, our mutual friend,

Scott Benner 6:47
right. And Vicki has been on the show and done a terrific job on the show a couple of times. And so she's I'm just being whisked away. Like I'm just, I'm a rag doll. Like, take me wrong going get me to the airport. And we get out there. And I don't remember the conversation like word for word. And I was really beat up. I remember being told that you eat low carb, and that you might not like me. And that's really all I knew.

Susan Keuter 7:13
And and, and I would say that that is an accurate memory.

Scott Benner 7:18
Good. Good. So I like so we're clear. But now you know me differently. Do you like me now?

Susan Keuter 7:24
I'd like you better have That's excellent. Okay,

Scott Benner 7:27
great. This is gonna be fun. So you have, I would say you hold fairly closely guarded feelings about carbs and people with type one. Is that right? I do. Why don't you tell me about it?

Susan Keuter 7:44
Well, I've been diabetic since I was a freshman in college. I was diagnosed and now y'all know how old I am. Okay, so I was diagnosed, when my parents were living 1400 miles away from me. I was in a town where my college was go big red. And I sat on an exam table in a student health. And he said, You're type one diabetic. And I said, Okay, I have a math midterm in three hours, can you just like, give me a shot? Or give me the RX? And let me go? And he's like, Oh, no, no, no, no. So the next day, I had to come back and meet with like, an endocrinologist who I think was the visiting endocrinologist at student health. And he was old, white haired, and I'm sure had been practicing very successfully in my small town of for lots of years. But he looked at me and he said, there's a cure 10 years down the road. And I'm like, sweet, I can wait that long. And he said, but the cure is not going to be for everybody. He said, The cure is going to be for the healthiest, best controlled and most willing to do what it takes. And I'm like, I can do that too. I mean, I'm a Cornhusker. And I'm a freshman living alone. I can do this. Just tell me what to do. Yeah. And he said, eat lots of meat. You know, protein. And I don't even think he called the protein back then. But he said, stay away from cookies and cakes and pop, which is what we call it in Nebraska. And fruit, and grains. He said they're horrible for diabetics. And I'm like, okay, I can do that. I mean, I'll eat a pork chop and a hamburger. That's fine. I can do that. He said, No potatoes, no starches, and I'm like, Oh, wait, hang on. It's just changed.

Scott Benner 9:47
What about a big potato? What do you say? No,

Susan Keuter 9:50
no, what about a baked potato? And he said, you can have it he says because you're going to be taking insulin, he said, but it's going to be easier. If you avoid those foods.

Scott Benner 9:59
Okay? And this is

Susan Keuter 10:01
okay. And then he ended it with. And I say this today, because yesterday was the inauguration and he said, you can have cake. The day you get married, and you can have champagne. The day a woman is elected to the White House.

Scott Benner 10:19
He was trying to tell you not to drink I think,

Susan Keuter 10:21
well, maybe. But what college person drinks champagne?

Scott Benner 10:27
Yeah. And that was 37 years ago. Yes. Okay. Yes, I'm 11 for borrow one. Borrow another one. Hello. I'm doing some quick math here. 11 keeps on 678 910 oh my god dammit. Eight 910 819 84. Yes, yes. I use the pen for that. Just, I think.

Susan Keuter 10:51
Yeah, so, um, so that made sense to me. Now, I left that doctor's appointment. I mean, he also told me some horrible things. He said, You're really young. He said, and your parents live far away. He said, you probably should go home at the end of this year and just assume that you're going to stay there because college is going to be very hard. And no one's going to want to marry a diabetic. So you're not going to be married. He said you should go home, move back to Florida, and focus on taking care of your parents the rest of their lives.

Scott Benner 11:26
Wait, you said 1984 1954? Exactly. Wow.

Susan Keuter 11:31
So you was he was very old. He I mean, he was geriatric endocrinology. I understand. He was a little white haired man. And, and I was like, well, screw that man. I am the first person to take on a challenge. In any group, you ask everybody, I will raise my hand first. And I'm like, I'll prove him wrong. And he said, you're probably never gonna have kids, which is another reason no one's gonna ever want to marry you. And he said, work will be very difficult. So career choice, you're really looking at just more jobs than careers. And this is this is to an 18 year old who's sitting away from her parents in a tissue paper gown on an exam table.

Scott Benner 12:19
Yeah, horrified.

Susan Keuter 12:21
Well, and I left and I had to drive home to my dorm. And I'm like, Well, that was that was kind of a crappy way to end my day.

Unknown Speaker 12:32
Did you believe him?

Susan Keuter 12:34
For a moment I did. But then, my grandfather was type one diabetic, as was his mother. Um, so the first person I call after my parents is my grandmother who lived in Nebraska where I was going to college. My grandmother did. And I called her and I'm like, I'm, I'm type one, just like your husband wants. I never knew my grandfather. He died when my father was three. So I said, so I said, I'm type one, just like if she was distraught and hot. And I mean, all the emotions. But he, he did great things in his life. And this was a lot of years ago. He was born in 1919. And died in 1945, or 46. But he was an Olympic track athlete. He went to medical school, he was a successful ob gyn in his town. He was, you know, he, and she's like, if anybody can do it, Susan, you can.

Scott Benner 13:37
Now you're getting some better advice. At least that's excellent.

Susan Keuter 13:40
And so why my grandmother was terrified, and she felt guilty. And it was, you know, all the emotions, like I said, she gave she built on what the doctor said in the first half of our visit, which is, if you want that cure that's coming down in 10 years, because we know it's common. We just didn't know when to start the clock for the 10 years. He said, it's only going to be for the best of the best. It is He says, he talked about complications. And he's like, they are not going to waste a cure on somebody who's got complications, and I'm not editorializing here about complications and cures and all kinds of guys. That's what he told me as a teenager, right? Right. Now I understand. No, I so I raised my hand and I'm like, Listen here, dude, the line forms behind me. And I'm sitting here on the floor in my closet with my hand in the air, just so you know,

Scott Benner 14:32
in case we have to bring this up in court ever.

Susan Keuter 14:37
So, so I took that and now, two days later, I had to go to a diabetic class at a hospital in our town and I was the I was the youngest person by probably 30 years in the room and I was the most close to my normal healthy weight. And I was the only type one so That was my way of saying I was in a group of morbidly obese type two diabetics who already had gross complications, amassed.

Scott Benner 15:10
And that's where they stuck you for your learning.

Susan Keuter 15:11
And that's where they stuck me.

Scott Benner 15:12
Yeah. Because there was,

Susan Keuter 15:15
right. So they're talking about breakfast of oatmeal and orange juice and half a banana and an English muffin with margarine on it. And I'm like, Well, that doesn't sound anything like what he told me two days ago. And she says, Oh, no, you're type one. She says, I don't teach type ones. And I'm like, Oh, okay. So I kind of left, they're gone. I'm on my own. But I remembered what the doctor said. And I've remembered it for 30 some years. Now, have I always followed it? No. Because let's face it, I was a teenager in college,

Unknown Speaker 15:53
right?

Susan Keuter 15:56
But I did a lot of self experimenting. And you know, we as diabetics are a living science experiment every hour, or every day or every week. And I knew that if I just had a double hamburger and ask the lunch ladies in my in my dorm, to to leave the barn off and just give me extra pickles and extra cheese. I had a much better afternoon.

Scott Benner 16:24
And what was the insulin you use? back then? It was was it regular and empty? It was right.

Susan Keuter 16:28
It was it was regular and NPH. But I think I even started I was looking trying to look it up last night. I think it was Len Tae l e n t

Scott Benner 16:39
and no meter, right? Like no portable meter.

Susan Keuter 16:42
Oh, no. And actually, I left the doctor's office with the little cups and sticks in the tablets for your urine and everything. And then my mother flew up the next week to be with me. And that week, we got a phone call while she was there saying you can now buy a home meter. But it

Unknown Speaker 17:03
was something that you had

Susan Keuter 17:04
only tested my urine for a couple of days ago. Um, but I had a meter and it was $600. And I picked it up at the Walgreens on Oh Street. I'll never forget walking in there. Okay.

Scott Benner 17:15
So I have to tell you, yes, you were diagnosed. My best memory four or five years prior to my friend, Mike, who if you listen to the podcast, you know, passed away about a year or so ago. And as horrifying as I find what you went through, and I do based on the technology back then in the insulin back then I imagine that you are in the condition you're in today. Because that person said those things to you and I hate to prognosticate. But if somebody would have scared my friend Mike like that, I think he might be alive still.

Unknown Speaker 17:47
So yeah, right.

Susan Keuter 17:49
I would I would absolutely agree. And I and I mean, this doctor in my memory is very love hate. I mean, yeah, he talked about amputated feet and blindness, and no children and no husband and, and blackened fingers and all of that. But he also gave me the best advice

Scott Benner 18:10
that was available, then.

Unknown Speaker 18:12
That was available, then

Scott Benner 18:13
yeah, it's hard not to. If you're listening, it's hard. Maybe for you not to feel emotional about that, that the harshness of the advice, but you have to remember the timing of it. The timing of it is no no fast acting insulin, no meters that you can just check with constantly to see what your blood sugar is. this was this was somebody trying to tell you like, Look, we are going to approximate insulin in your body. And the fewer carbs you take in the easier this is going to go. Right. Gotcha. Yeah, I mean, and you are. I mean, we don't have to guess right? 37 you're probably in college. You're probably about 58 right in there. Did I do it that I hit it right on the head?

Unknown Speaker 18:52
Oh, no.

Scott Benner 18:55
Are you laughing because I picked the number that's much higher or much never mid

Unknown Speaker 18:57
50s? mid 50s. Okay, yeah.

Scott Benner 19:01
So you were in high school when you were five? I understand. I was. But no, but but my point is, you've lived a very long time. So So I guess I guess we can all understand that as a as a teenager you weren't perfect about it. But kind of skip ahead a little bit to where it became just a normal thing for you just this is how I

Susan Keuter 19:24
mean low carbon general

Scott Benner 19:25
carbon generally when would you say that you just settled into it and this was just your play?

Susan Keuter 19:30
Well, I I was very much settled into it. And I mean, we didn't call it low carb than it was back when do we were doing starches and exchanges and all that BS. We didn't call it low carb. I just knew that if I indulged on Italian night at the dining hall, I didn't sleep because I was hot and sweaty and had headache and my mouth hurt. I did better if I enjoy On ribeye night,

Scott Benner 20:02
I think it's great. I think it's great for people to hear that that was the thought process for you. It wasn't that, you know, I tested a bunch and I saw these numbers, I chased them around and all the things that people feel now when their blood sugar goes up, and they have this technology to see things, that it was just really if I eat Italian night, I'm gonna feel sick later and be sweaty and not feel good.

Susan Keuter 20:23
Right. Right. And, and I was a student in college, on top of living living by myself, which meant not you know, it had you got to get yourself up and you got to get yourself over to the dining hall and Damn it, you got to get to class. Yeah, right, whether you want to or not. And, and that's easier to do if you feel better. Right? That's easier to do if you sleep

Unknown Speaker 20:44
well, right.

Susan Keuter 20:46
And so that doesn't mean that I didn't go to the movie theaters and eat popcorn at the time. And that doesn't mean that I didn't have hotdogs at Memorial Stadium. But when I could, and when I told my doctors at the time that I was doing this, they're like, Why? Why are you doing this?

Scott Benner 21:06
Oh, man yelled at me when I was wearing a paper dress.

Susan Keuter 21:09
Exactly. But I but but it came down more to it. I'm kind of a wimp. And I'm lazy. And I don't like feeling bad. And I like it to be easier.

Scott Benner 21:23
And if this just did, listen, I have to be completely honest with you. I don't subscribe to a way of eating, you know. And I nobody in my family does either. And I don't have any trouble in the world with how people eat. This is why I've been doing these conversations. I think it's also why it's fairly unique that online on in Facebook, that you operate completely well inside of a Facebook group where people are there to learn how to use insulin, so they can eat carbs, like whatever whatever they want.

Susan Keuter 21:54
Well, I will tell you, Scott, that I'm when when I don't know when I hit 65, I'm probably going to publish a book from all the nasty messages.

Scott Benner 22:04
But But yeah, but I'm certain that people are, are initially shocked because you probably feel to them like that doctor felt to you. Although I have to be honest with you, I think I think you do a very good job of talking about I have seen other people talk about it. And if you were like them, I would have asked you not to do it. But and you're not I just I think you're a very, you're a mirror, you're like, Look, this is how I eat, here's the food, here's how I make it, these are my results. And that's to me is just a smart idea for everyone to understand. I'm not saying anybody should be I try to say this in every one of these episodes, I don't care if you don't eat chicken, or if you don't eat fish, or if you're a vegetarian, or you don't eat, none of that matters to me, I don't imagine that even if I knew the perfect way to eat, like, let's pretend for a second there was one. And it worked for everybody. I couldn't even imagine how to make everyone believe that. So it's always been my idea that however you eat, I'm just hopeful that you understand how insulin works. So you have a real chance at it.

Susan Keuter 23:07
And I think that's why I like you more than I did two years ago at that February type one summit. Because I've I've listened to more of your podcast and I've picked up on that. You You really do want the best for people using achieved through proper use of insight.

Scott Benner 23:25
Yeah, however much that means whether you use five units a day or whatever, and I

Susan Keuter 23:29
appreciate that. Thank you.

I do however, also subscribe to the fact that insulin is one of the most dangerous injectable liquids we have.

Scott Benner 23:40
Or you definitely hurt yourself with it. Yeah.

Susan Keuter 23:43
And that's what scares me. And I know we're not you know, we are supposed to hate it when people say oh, how much basil? Is your five year old using? or How much? Because you can't we need what we need. I get that and I say it all the time. Don't look at my bezels look at your basil and make sure yours are dialed in. Yeah, don't look at my Bolus. But it does it there are times that I'm taking a break at school and I refresh my Facebook page and I see somebody who's put up a picture of their PDM or they're t slim and they've got six and a half units on board and a temporary Basal right dialed in, and I get nauseous.

Scott Benner 24:22
But so I want to know why though. And if you don't know that's fine if it's just a guttural reaction. But is there something that happened or was like what put you into that mindset? Because I genuinely believe that somebody who is diagnosed today who finds the podcast comes on has the technology to see everything will probably never feel that way. But you do and I'd love to know why. Not because

Susan Keuter 24:50
it will but it just comes back to the food. Because if you don't eat if you don't eat the huge amount of carbs, right Some people are sharing that their kiddos eat when you don't need those huge doses, and that's where the danger comes in.

Scott Benner 25:09
Do you expect that that's how people eat every day?

Susan Keuter 25:14
I don't know. I mean, when? No, I mean, do they eat the the waffles in the cream cheese and the maple syrup and the orange juice? No, I don't. I mean, Lord, I was a mother for a lot of years. Well, mate, I'm still a mother, but they don't eat breakfast for my kids for lots of years. And I didn't cook like that every single day before school. Right? But you know, like the cereal. I mean, seriously, there is very little redeeming nutritional value in any bowl of cereal.

Scott Benner 25:43
Yeah, it's terrible for you. It's 100% terrible for you, right? And

Susan Keuter 25:47
people work so hard to try and figure out how to keep their kids so that they can eat it.

Scott Benner 25:55
So that's not how I see what they're doing. And let me see if I can give you my perspective. Okay, I think that in a 16 week football season, they're trying to go 14 and two, right? That's what they're shooting for. And when they beat the Texans, or some other team, that's an easy win. They don't get in line and tell anybody about it. But when they take down Tom Brady, then they throw up a picture on social media. They're like, yeah, look, what we did. We beat Brady, I beat Aaron Rodgers this week, I think they show the real big wins. And I think that the skills that they get beating Brady, are then put into play in the weeks when they play the Texans. So if you can crush a waffle, and not cause any kind of a spike, imagine how well they're doing on the days when they're having, you know, a BLT, I have a BLT and a little bit of a salad or, you know, avocado toast or something like that these things, then are no trouble for them at all. They just show up, put their pads on and run these things over with no trouble. So I mean, I don't bother sharing when I you know, keep a line flat, that's 20 carbs in a meal. Because that's just, that's just easy at this point. Right? You know what I mean? Like, that's how I see now. And I want to expound and say,

Susan Keuter 27:17
Well, wait, wait, I want to interrupt you. I'm sorry. Don't be sorry.

So you said a meal with 20 grams of carbs. And you kept a straight line, or a level. And I hate that I hate it when we talk about flat lines. Because seriously, that's death to me. But so what if you ate that way all the time? And And what if I could share with you my amazing waffle recipe that fits into that category?

Scott Benner 27:46
No, I think that for anybody who wants to do that, that's terrific. What I'm saying is I go back to I don't know that I could impact everyone in the world to do that. And it's my expectation that more often than not, even though it's completely unredeemed calories, and I agree with you, a box cereal is what some people are going to eat. And if someone if someone doesn't teach them how to use insulin for that cereal, they're still going to eat the cereal. And then they're going to struggle with their health. in in in multipliers of ways. My idea is, I can't teach everybody how to eat. I can't, but I can share what I found that works for managing those things. If those are things are what you choose to eat, I think the problem becomes is that from, from our perspective, similar to yours, and I don't think you but from my perspective, similar viewers, it's easy to see like, oh, that guy, he's pushing eating poorly. Or he he wants you to use a ton of insulin. I don't, I don't none of that matters to me. I don't care what you eat. I'm just saying I'm just saying everyone's gonna eat a different way. They at least deserve to understand how the insulin works.

Susan Keuter 28:55
And and I would say that the education you do, teaching about basil testing is vital when the capital V for diabetic success and diabetic control, even though I don't like that phrase either control. It's vital. So you teach about that. And you teach about Pre-Bolus seen and you teach about extended Bolus and I think and it is important because Lord knows that the medical culture, endocrinology, diabetic dieticians, diabetologists, whatever the heck that is. They are lacking grossly.

Scott Benner 29:43
I believe that the general the general teaching is begins with an idea of these people don't have a working pancreas, their blood sugars are just going to spike. And then then it becomes the idea of like, Well, you know, we just don't want to go to Hi are we don't want to stay high too long. To me, it seems like showing up at the game and saying, oh, we're definitely going to lose. And I don't think that you have to have type one diabetes, eat carbs, and have poor health outcomes. Lately, you know what I mean. And it's not to say that I don't disagree with anything that you're saying, I think it's completely obvious that if you eat fewer carbs, managing Type One Diabetes is incredibly easier. Like it just it just is there's there's there can be no way around that I've never tried to make the point that it wasn't. Right. But But and to hold two things up at the same time that are now two years apart from each other. If I come in there and try to have this more thoughtful conversation, when I'm going to show up and speak at a jdrf event, for example, there are 500 people there who I'm not going to get the message to that. There is a way to put insulin in the way of carbs and create less spikes and fewer lows. Yes. So if you don't want

Susan Keuter 30:58
to turn off a lot of people, especially the mamas who are sitting there,

Scott Benner 31:02
yeah, because they don't want their kids lives to change. And and that's even reasonable. So so it's a weird thing, because I have to come in like a ninja, say enough, that makes you believe that there's a way to use insulin correctly. And enough to make you believe that there's information out there, whether it's my information or someone else's that you can go find that might lead you down this path. And I have to get out and be reasonable. And if I start with, don't get me wrong, if you eat absolutely no carbs, this will be easier. Not only will it maybe turn some people off, but maybe it'll just give them the idea that well then that's not possible. And while I think you live very happily eating the way you eat, there are some people eat that way and are tortured by it. And so I just want people to have options, that's all.

Susan Keuter 31:45
No, and options are good. And and do I occasionally make a decision that goes against my normal day to day life? Absolutely.

Scott Benner 31:57
What's absolutely that's this isn't

Susan Keuter 32:00
one of very few and far between. But what is it? Like? What

Scott Benner 32:03
is the thing that just makes you all screw it? I mean,

Susan Keuter 32:06
most recently, it was a margarita out at a restaurant.

Unknown Speaker 32:10
Yeah, that sounds right.

Susan Keuter 32:13
And it was just it was like, you know what I said? I said, I'm not supposed to say, I'm not supposed to drop an F bomb. My husband said that before I walked into the closet, don't drop an F bomb. I can said to heck with it. I said I'm having a margarita. Right. And I was probably halfway through. And dex was going off. And I'm like, this is not going to end well. And he's like we're leaving. Because cuz I know how this goes. He says then you just beat yourself up the whole night. And our whole evening out is ruined. And and he says so let's just go just put the Margarita down and let's go home.

Scott Benner 32:46
But if I was with you while you were having dinner, I think I could have Bolus for the Margarita.

Susan Keuter 32:51
And and, and I did I mean, I tried to Yeah. The problem is, is that and I don't see it as a problem. It the problem with people that say and I talked to them all the time. Well, we eat really low carb on the weekend. But then once we get back to school, he he you know Katie bar the door. And that's hard.

Unknown Speaker 33:15
Much harder, well, around,

Scott Benner 33:18
you're so so much different. So what because because your settings are so much different. If you're eating low carb for a number of days, you're Basal you lower your ratios for meals or lower, then all of a sudden you shift back you don't see it coming, you're not ready with the settings then everything jumps up on you.

Susan Keuter 33:32
Right. And so even though I ordered what my restaurant where we were in what's called the skinny carb, I mean a skinny Margarita. I you know, I looked it up online and I bolused and I waited until it came and blah, blah, blah. It I still was just off the charts.

Scott Benner 33:48
Yeah. My chart. Can you Yeah, I was gonna say can you give perspective for that? How many carbs were in it? And where did your blood sugar get through? That was a lie.

Susan Keuter 33:55
I Bolus for 32 carbs. And I my alarm start going off at 120 I mean, I was watching it. So I knew it was going up but but I was I was diagonal arrow up at 120. And I think I topped out at 160 I had a temporary Bolus I was I was walking I you know doing everything I could to get it down and I got it turned around real quickly. Yeah. Um, but but I don't feel good. It's and that's the other thing is I I'm very sensitive because I'm so keyed into my range.

Unknown Speaker 34:32
Sure. I'm,

Susan Keuter 34:35
literally if I wake up in the middle of the night, and I feel hot. I know it's because my blood sugar's over 110

Scott Benner 34:42
No, no, I believe that I have to be honest. I mean, for me, 145 is the top of where I would want Arden to be after a meal. And I'm not one of those people who tries to keep an incredibly flatline I just think that you know I want to CGM. I've seen the natural kind of Rise and Fall of my own blood sugar and I Over 145 is where I start thinking like I messed this up somehow. And Right, right, and I tried to bring it back in what I'm saying is using the Margarita as an example, your basal rates are set up for a person who eats low carb, and then you tried to just Bolus for something that was liquid sugar.

Susan Keuter 35:18
Absolutely. No it was on like I said, I'm it was a it was a bad day.

Scott Benner 35:22
But but had you an hour before that jacked your Basal up a little bit and been like, okay, Mama gonna live like this now for a little while, then I think your Bolus works better and you don't get into the 160s is my point.

Susan Keuter 35:32
Yes. And probably but I mean, it was this was the spur of the moment decision, of course, of course. And so and i basil test about every other month, where I fast from dinner on Monday to breakfast on Wednesday. Okay, and so I turn off basil IQ, and I let it ride. Just so I show my basil for how I eat and how I live and my activity level and my job and all of that I my bezels are set perfectly for me.

Scott Benner 36:03
Can I ask a question? Is there anything about the podcast that's valuable to you in a low carb life? Like, have you are you employing anything in your life that you've gotten from me or this podcast?

Susan Keuter 36:14
I love listening to people's stories. I don't I use the T sun. And I only use basil IQ. I don't use the control IQ. I'm only two and a half years into my Dexcom. So I mean, I don't I don't need tips on my pumps, or Dexcom or anything like that. I love the connection to people because I love hearing stories because we all have different stories me to

Scott Benner 36:46
know I'm glad I really am. And and I hope that I'm sure I haven't so far, but because we're halfway through, I'm just gonna say it out loud. I hope you I hope you just remain happy. I hope everybody's happy. Like I'm not over here thinking like, Oh, I'd like to dangle a pizza under this person. So like, I don't think that way. I'm just

Susan Keuter 37:03
and the thing is, is you could like seriously if that I I'm not one of those people that because this is how I eat. I can't have Doritos in the house. Right? And I can't order I mean, my husband when we order pizza we order from a place that has a keto crust, and I order that one and he orders the double pepperoni, New York style. And that's how it goes. Yeah.

Scott Benner 37:25
Oh, it

Susan Keuter 37:26
doesn't bother. I mean, I I make sugar cookies every Christmas for dozens and dozens of people. And I don't have one. I can do that. I realize that not everybody can.

Scott Benner 37:38
Yeah, no. I mean, I get 100%. Right. People's level of resolve around food. Yeah, yeah. And how much of it? Do you I would characterize this as probably being true, but you have so I would imagine little sugar in your system, that you're not getting hit with that, that kind of more and more drug related like the like they What do they say like, more addictive than some drugs? Right. And so, and I I've had that happen as well. And by the way, I'm a proponent of every once in a while just going I'm not going to eat for a day or so. And just you know, just stopping for a while. You know, I made handmade pizza this week. Yeah. And I knew like and they're just little like you know 230 gram balls of dough and it's it's cold fermented and made out of, you know, better flour digests very easily. I watched it not really impact anybody's blood sugar too terribly at all was terrific. But at the same time, I think Bob and I make pizza eat pizza, have some leftover pizza and then probably on the third day Scott's probably not going to eat on the third day, you know, like, or I'll be five pounds heavier when I wake up the following week, so I just I

Susan Keuter 38:50
do I'm a big proponent of of fasting. Intermittent fasting overnight fasting basil testing fasting. I know you can't do it with kiddos. I totally understand that. But there's there's I personally believe that being in a fasted state is it has some definite benefits. Yeah. Energy burst. I can. I'm like the Energizer, Energizer Bunny, because you're running on on ketones. And that's a good thing.

Scott Benner 39:19
Right now I take you know, as a person who doesn't have diabetes, I take very seriously the idea that a number of generations back and not that long ago, people didn't get to eat every few hours. Every day. Yeah, exactly. They stayed alive just fine. So yeah, I believe in that as well. Can I ask about um, before I really dig into how you like what you cook and how you doing everything, which I'm going to add in a second. hormones, periods when you're low carb. Is that still difficult?

Susan Keuter 39:50
I will tell you that. I was diagnosed freshman year in college. I have been menstruating since high school. I have never noticed a change to my insulin needs. My blood sugar's because of my hormones.

Scott Benner 40:11
Okay, but you've only you've only had a

Susan Keuter 40:14
I only have worn a CGM for two and a half years right now I wasn't a 12 to 15 finger pokes a day for years and years and years. But I really never noticed that.

Scott Benner 40:29
How were your a onesies during that time? Would you mind share? Back in the day kids, they call that a cliffhanger. But unlike when I was a child, and you had to wait all summer, to see who shot Jr. I'm going to get back to Susan in just a couple of moments. All right, like this is simple. You go to my Omni pod.com forward slash juice box, you have a couple of options when you get there. One is super simple, you get yourself a free, no obligation demo pod sent to the house. This is an insulin pump from Omni pod that is not functioning but you get to wear it, you get to sleep in it, and shower with it and do whatever else you're going to do with it. To see what it would be like to wear an omni pod. From there you can make a decision about trying more is one option you have there at my omnipod.com forward slash juicebox. Another would be to find out if you're eligible for a free 30 day trial of the Omni pod dash. What I know what you're saying? I could use it for 30 days for free with insulin it you might be able to you could be eligible, go find out my omnipod.com forward slash juice box. Now why would you do this tubeless. There's no tubing within the pod think of an insulin pump in your head. You think of this controller that's attached to a bunch of tubing that gets stuck to an infusion set. And then you've got to connect the controller to like your belt. I mean, if even wear a belt I saw I've seen some ladies have to clip it on their bras. They're hiding everywhere. But if you get a shower with a tube, it's on top. I mean people take showers every day, right? Well, you have to disconnect your tube insulin pump from your insulin, but not with the Omni pod that on the pod gets right in the shower with you. Like a little shower buddy. The matter of fact I don't know why they don't call it shower, buddy. I mean, I guess cuz Some people think beds, or so that's probably bad marketing on the pods better. Anyway, my on the pod.com forward slash juice box, check out the possibilities. See if you want that free, no obligation demo sent to your house, maybe you're gonna get that 30 day free trial period of the Omni pod dash. The possibilities are limitless. Go find out my Omni pod.com forward slash a juice box. Now you're gonna want to dexcom continuous glucose monitor to you just do I know you're sitting there thinking like I don't want to be a robot. I don't want my Alright, I here. But try it dexcom.com forward slash juice box. Why do I say this? Not because I want stuff hanging off you. But because the data that comes back from the Dexcom g six continuous glucose monitor is unparalleled. Because the safety that the alarms affords you is amazing. And because you can share your data or your child's data with up to 10 followers, if you want to imagine that a spouse, a school nurse, a well meaning person at the Public Library, whoever you want to give your data to you can they can maybe I don't know I've heard people on the show say oh my father has it in case I get too low. It gives me a call if I don't answer, blah, blah, blah. Like there's a million different ways. But this data is crazy exciting. Because you get to see how your blood sugars react to insulin to carbs to stress to life, and then make adjustments that benefit you dexcom.com forward slash juicebox go get go get it just are you arguing with yourself right now? You're in your head like I think I'm right. I think the guy on the podcast has talked me into it, but I don't just try. It's amazing. It is life changing. Get your Dexcom get your on the pod and then get back to Susan. No, wait. You don't have to pause it. Just do it after the show. I guess. There's links in the show notes. There's links at Juicebox Podcast comm when you click on my links, you're supporting the show you're helping to keep it free. I appreciate it. If you do just that.

Susan Keuter 44:37
My first agency that I knowingly took was in 1990 when I got married and moved to Arizona and went to the Mayo Clinic for the first time in my agency was 6.2. Well, that's very, very first time and they ran it again because the endocrinologist who was the head of indicado ology at the time said, Oh, that That can't be right. And then two appointments later I asked him if I could ever get pregnant. I said, because I've always been told I couldn't get pregnant. He's like, Oh, you can definitely get pregnant. And he said, but I'm going to want your agency lower. And I said, Okay, what number and he said, 5.5.

Unknown Speaker 45:23
And I'm like, Okay,

Scott Benner 45:24
well, so what did you do there? You use more insulin, or you ate fewer carbs?

Susan Keuter 45:30
I probably Yeah. Just, I mean, I that was the same year I started using human log.

Scott Benner 45:36
I was gonna say, when does the when does the fast tracking insulin common?

Susan Keuter 45:39
Yeah. So 1990 brand new doctor, big old fancy Mayo Clinic, new husband, new puppy, new state. And I'm like, hey, let's try a new insulin. And so that was probably my biggest experience into kind of unbridled carbohydrate intake. Because what did they preach? All the insulin work so fast, you can eat anything. It's going to take it, it's going to, you know, whip it into submission. And I'm like, okay, but wait, you also want my agency lower. Right? You just gave me this faster acting insulin.

Scott Benner 46:22
So it was kind of confusing, and a perspective issue too, because every medical person you talk to every one of their experiences has been with regular and mph, and they were like, this stuff is magical. This is jet fuel compared to that, not compared to how quickly carbs hit you.

Susan Keuter 46:36
Right. Right. So, um, so I, I, that was probably 19/91 couple years of marriage was probably my biggest excursion into standard American diet. Okay. And I'm sure my I'm sure my agency got above seven.

Unknown Speaker 47:00
You I'm sure it did.

Scott Benner 47:01
We were thinking the National Guideline back then. I don't even know what it was. But if it was in the eights, I wouldn't be surprised. Yeah, right. Um, it's only seven now. Right? or seven? What? I think the ADA just moved it again. I was surprised at how high

Susan Keuter 47:14
yesterday to under seven for children. And that's the first time they've done that. Yeah, yeah.

Scott Benner 47:20
And I stood up and clapped. Yeah, that's great. People don't realize it's funny when I, when I'm telling people about the T one D exchange, I'm like, you know, they got you know, guidelines lowered for bah, bah, bah, I know people here that don't think that's a big deal. But it is a big deal. Because those guidelines are what the doctors take to learn how to think. As crazy as that sounds like they're like, Oh, I'm supposed to be telling them this now. And then they do. I wish everyone

Susan Keuter 47:45
and my and my doctor rolls my eyes. And I know that she has she's type one herself. And she has to cover her own ass in her medical notes, and my chart. And so sometimes the message I get from her face to face is different than the message that's in an email or written down in my chart. And I get that. It bothers me that an organization that takes money from a lot of insulin makers is setting the standard setting the guidelines, setting the rules, so to speak.

Scott Benner 48:22
You know what, though? You would think if they wanted you to use more insulin, they tell you to keep hearing.

Unknown Speaker 48:26
Like, well, but they they've so weird, conglomeration,

Scott Benner 48:31
I'm not I'm not disagreeing with you. Yeah. I, I have definitely been in situations where the words coming out of someone's mouth. weren't the words being written down on the piece of paper at the

Susan Keuter 48:41
same? Oh, yes. Oh, yes. And I and yeah, that was the one drawback to tell them it is. I'm like if these are being recorded, she's obviously saying she's pointing her finger at me and chastising me. And I'm going What happened?

Scott Benner 48:56
Susan, this is far too low. And she's writing looking up at you and mouthing,

Susan Keuter 49:01
exactly. Anything. And of course, to all of my friends. I say she's just jealous.

Scott Benner 49:08
So, um, let me let me you have always come off to me as a reasonable person. And very reasonable.

Susan Keuter 49:15
Don't ask my children. But yes,

Scott Benner 49:16
I want to be sure to them. You're a lunatic. But that's not what I'm saying. If I could magic wand, and make you in college today, and you were sitting at a table, not with a guy who told you, hey, you're only a baby machine and your baby machines busted. So you're no good. If that wasn't your world, if you came in today, and you met a doctor, and that doctor said to you, Hey, I'm gonna put a glucose monitor on him and give some insulin it works pretty quickly. What I need you to do is use your insulin in a way where you know the actually the insulin impacts the carbs as they're trying to impact your blood sugar. If you do that, I think you can keep your agency in the fives, neat, whatever you want. You think you'd be a different person 37 years from now.

Susan Keuter 50:01
Um, I, the problem is, is that it's not that cut and dry. Okay? Why? Because we know that it's not just carbs and insulin. We know that it's not. If I can just look at a label of chips ahoy and see that two cookies is 28 grams and inject three and a half units and be fine. It would it would work. But it depends, or breakfast did I have? What's my stress level today? What's the weather outside? How did I sleep last night? How much insulin do I already have on board? How much longer? Is it going to be till I eat next time? Do I have a headache? Is my husband irritating me? Do I have to go to work tonight?

There's so many variables. Right, right.

And so it is not just a one plus two equals 300%. It's all those subscripts and superscripts. And powers and integers that I don't understand. Let me ask is that that goes into the equation?

Scott Benner 51:06
Of course no, 1,000,000%? It does? Have you listened through the pro tip series all of them?

Susan Keuter 51:12
At least not all of them? No.

Scott Benner 51:14
Because I would say that to the best of my ability. I have covered all of that. And I realized that everyone's brains not going to work the way mine does. And me just saying to people you have to stay flexible, might end up meaning something different to them. That does to me. But But Susan, if I could show you the correspondence that comes to me privately, I think you would agree that a majority of the people who want to understand how to do it and try to find a way to stay fluid through all those variables, those people do end up figuring it out.

Susan Keuter 51:51
And that makes me so

Unknown Speaker 51:53
happy too.

Susan Keuter 51:54
It truly does. Because ultimately, I don't care how your daughter eats. I don't care how all those people that comment on my fat head dough cinnamon rolls, pictures, I don't care

Unknown Speaker 52:07
how they look really good.

Susan Keuter 52:08
But if they are, but if they want to try something, and if they subscribe, and I say this a lot and I say it half jokingly and my daughter rolls her eyes loudly at me when I say I'm grumpy. I'm old, and I'm lazy.

Scott Benner 52:23
Well listen, I understand you that this podcast exists because of my laziness. And the thing that you just said, because I can't just look at two cookies and say it says 28 put in 28 that's definitely going to work. I just stopped counting carbs altogether. I just started thinking to myself, two of these cookies is going to impact you know, three units. And I stopped thinking about the carbs. And I started thinking about impacts and learning, you know, from repetition and practice and stuff like that. I honestly believe that's the only sane way to get through a life where you have type one and you're giving insulin for carbohydrates. Because if you try to stick to the math of it, it's gonna occurs. Tell your husband I did it's gonna be every time. Yeah,

Susan Keuter 53:07
yeah. Thank you. Thank you. Okay, see, now you open the floodgates there, it's on.

Scott Benner 53:10
I'll just, I'll just edit it out. That's fine. Although I let me say sidebar. I got a note yesterday from a woman who was very concerned that I joked about cursing with a young kid that I was interviewing and I had to, I had to email her back and say, I just need you to know that the boy, I talked to him afterwards, and I made sure you understood. Plus, his parents are very happy with how it went so or, but she was reaching out the defendant. And so I thought that was really lovely.

Susan Keuter 53:36
Um, it was lovely. And very few things are underrated more than a well placed f bomb. I've always told my children that. But no, it's if carb counting was an exact science. It would be great. Yeah. My son in law has a disease called PKU. Okay.

Unknown Speaker 54:03
I don't know if you know what that means.

Scott Benner 54:04
I will was I'm googling and you're talking.

Susan Keuter 54:06
But it means it's it's what our newborn babies their heel prick with the little round bandaid on their heel in the delivery room is so with that blood tests tests. And he cannot eat naturally occurring protein of any kind.

Unknown Speaker 54:20
Okay. Well, I

Susan Keuter 54:21
mean, I mean, he's allowed to limit a hard limit, like, you know, 10 grams of protein a day or as he aged, it got different or you know, whatever.

Unknown Speaker 54:33
And

Susan Keuter 54:35
the repercussions of that disease can be immense.

Scott Benner 54:41
I'm seeing that. Oh, yeah.

Susan Keuter 54:42
And, and so when when I'm with my kids in Nebraska, my daughter and son in law in David and I make a great pair because he eats all the carbs and I had all the protein and we're just great. Like, jack sprat could eat no fat His wife could eat no lean. But um, he has a new drug that is just been approved. And now all of a sudden, he's being allowed to eat protein naturally occurring. I mean chicken and beef, and now is his formula. And there are times that I look at and, and he grew up in a household. He had siblings, and parents and grandparents and cousins and friends. And they all ate chicken and steak and hotdogs and cheese and butter and eggs. He couldn't. He survived. He's just fine. He's a very well adjusted healthy, adult male, right? And the reason the reason I like bringing that up is because people are so quick, so quick to say, I can eat anything I want. Of course you can. Of course you can. If your mouth opens, you can eat anything, you damn well, please.

Scott Benner 56:03
And that feeling of like, I want to be normal. I want my kid to have a normal experience. Right?

Susan Keuter 56:07
But But who's defining normal and see, that's where I get it. I just, oh, it's a good thing that Facebook does not have like live feeds, because I read these things. And it's like, kid first diabetes second. Well, but here's the problem. Diabetes does come first.

Scott Benner 56:29
It's tough thing to ignore. That's for certain, but I would say that the person that's defining normal, is them. And then I would say that going from there using social media, I think. So I've, you know, I've been at this quite some time. And I can tell you that one thing that I know for certain is that, like a snake shedding its skin, the people on social media around type one diabetes, or a lot of things are there not long lived in the space, and you mostly catch newer diagnosed people are struggling people, right, that those end up being the people. So I need help, right? want help? I don't know what's going on. And so the messaging or the questions that you hear from them are very repetitive, and they're very specific to that time of diagnosis. So I've tried to imagine what happens to them when they leave. So imagine you show up online and you're like, Listen, you don't know anything about nutrition and you're eating a bowl Lucky Charms every morning for your whole life, right? It's just how it's always been. My blood sugar is going to 400 staying there for six hours, blah, blah, blah. Imagine if they were were met them by a person who said if you stop eating Lucky Charms, it'll be okay. Well, they're like, I don't know what else to eat. This is what I eat. I To me, it's akin to, you know, when Katrina came, and they gave people a heads up and they said, Look, get out of here, you're gonna die in a flood. And some people didn't leave, they did not leave because they didn't want to die in a flood, they didn't leave because they're, they've been living in a place where generationally, they didn't have an opportunity to own a car, maybe or something like that. They just couldn't leave or couldn't imagine leaving or whatever. So if you just give people the stop eating cereal, that I imagine won't work for most people. And those people will disappear, they won't get good information, and they'll eat the cereal the rest of their lives and have a one season attends, and no developed eating disorders and complications. And they'll be a written off statistic. Whereas I've come to look at the space as a place where you get you get an opportunity, in a very short time to put people into a different path. And then what they do with it after that I don't feel responsible towards nor do I think

Susan Keuter 58:49
I would agree with that. Yeah. And so that's why I say thank you for not kicking me off the Facebook group.

Scott Benner 58:55
No, that's why I like you there. See, I'm confused by people. Listen, I'm confused why people feel like they need to argue I don't understand tribalism. I'm not good at I'm on this team. And you're on that team. I don't understand why people even think that way. I don't care why they do. What I when I see you what I see is a person who eats low carb has had diabetes for a very long time has been very successful with it, and is willing to share it with other people. And if if, and that to me is terrific. And yeah,

Susan Keuter 59:28
that's, that's really that's my motivation. It's an Oh, I get the Oh, I mean, I don't even talk about ranges and an A onesies anymore because you're bragging you're just bragging you're just showing off. That's impossible. That's that's not natural. That's not normal, like okay, well, it is normal and it is natural, and

Scott Benner 59:48
I think it's easier. Um, you've been talking to people who are newly diagnosed and have bumped into other people who are newly diagnosed who are saying reactionary things because of the emotion No state that they're in in the moment. And I think it's happened to you so many times, that it just feels like that's how it is. what I'm telling you is imagine those people, nine months from now, when they've learned to Bolus for Lucky Charms, and heard the message that maybe Lucky Charms isn't good for them. Yes, you don't I mean, and I don't I'm not trust me, I'm not on you in any way. I think what you do is really great. And you're on hearing, I tried to make the point the other day, a person thought I didn't respect their opinion. I was like, why you wouldn't be on the podcast? If I didn't? What do you think I just have to have people on here? I was like, I've got I've got choices. You know, it's, I think that what you're doing inside of my facebook group is one of the most aspirational things I've seen happen online around diabetes in a really long time. We literally have the Hatfields and McCoys sleeping in the same bed. And not only are they having sex, but they're happy. And yeah, yeah. And I think that's amazing. I wish there'd be a pescatarian that would come in and start talking about how they I don't even know what that means. Is that a religion? Or somebody that doesn't?

Unknown Speaker 1:01:03
I don't know. I think it's a it's a faith. Yeah, I think

Scott Benner 1:01:10
it's hilarious. I just think that that's an uncommon thing. And I also believe that that Facebook group is working like that, because people are coming through the podcast, with a level of understanding already. So they're not. They they're all kind of similarly focused. And so they get along a little bit. I mean, try to imagine I don't, I want to be genuine. And I tell you that I don't poke around other people's Facebook pages. I don't listen to other people's podcasts. I don't know what other people are doing. But I can imagine that if there was a very popular, low carb Facebook page, and I just showed up one day and said, if you don't mind, I'm going to very politely talk about how you can use insulin and eat higher carb foods here, that I would be immediately ushered out the door.

Susan Keuter 1:02:01
Well, it would depend fate, Facebook page, or Facebook group, or things if you came to my Facebook page and said that I would be like, Yeah, well, it's not always a good decision to have boatloads of insulin on board. If you were in a group where there could be a conversation, like we do in your juice box group, right? I'd let you talk. I'd let you talk in mind. But I don't have a group I have a page. I just don't think most people what

Scott Benner 1:02:25
I think and take it away from food or diabetes for a second. I think if I showed up on a on a Mopar place where they were talking about dodge motors, and I just you're constantly talking about how great I thought Ford motors were, I think they'd be like, that's not the place for this get out. I did it that way,

Susan Keuter 1:02:42
you can also understand, I've been doing this a lot of years. A lot of years. I mean, I even though I was a teenager, like I seriously don't have, I have a hard time remembering what it was like to not be checking blood sugar or thinking about what was coming food wise, or activity wise, even though I was a teenager, but I have been doing it for a long time. And I'm good at it. And I'm not ashamed to say that I'm good at it. I have zero complications. I have normal aylan C's I have normal eyesight. I've you know all my fingers and toes. I'm pretty dang healthy. I crushed cancer two years ago, my endo said I'm going to make all of my breast cancer diabetic patients eat low carb, because you did amazingly well.

Scott Benner 1:03:33
That's cool.

Susan Keuter 1:03:35
I did all that. I do it well. But ultimately, ultimately, what I want is everybody, especially our youngest members of this damn exclusive club, to have normal blood sugars. That's what I want. So if people have figured out a way, using your tips, using your advice, adjusting, testing, all that kind of stuff, ultimately, that's what I want. period because that means health, right? That means health. And when that cure comes in 10 years, and the people that made the cure are standing around the corner, handed it out, and they're gonna want the healthiest and the most adaptable to a new routine, etc, etc. The line frickin stand starts behind me. But I do believe with every fiber of my six foot tall height, that

Unknown Speaker 1:04:43
eating lower carb

Susan Keuter 1:04:46
is just easier. I can say better. I believe it's easier. And that's why I do it.

Scott Benner 1:04:53
Now I don't see how it wouldn't be you're eating fewer carbs. You're using less insulin. When you use less insulin. You have fewer lows and more stability. small

Susan Keuter 1:05:00
numbers. Yeah, I mean, there's bigger room for mistake. I mean,

Scott Benner 1:05:08
yeah, you know, you and I are saying the exact same thing. And we have slightly different words in one of our sentences, you're saying, This is easier if you eat fewer carbs, I'm saying, This is easier if you figure out how to balance the impact of the insulin with the action of the food, or the actually, the insulin with the impact of the food is really all on. It's the same thing. And, and taking diabetes out of it for a second. Listen, you'll be leaner. And if leaner is healthier, you will be leaner if you eat fewer carbs. And if you and if you eat. If Listen, if you take processed food out of your diet, it's better for you. Like these are things we can't argue about. Like they're it's not, it's not arguable that red dye number something and a bunch of words you can't pronounce are better if you don't eat them like that. Right? That's just reasonable. But I'm also telling you that I understand people are going to eat those things. And I don't want them to have a high blood sugar after they do. Yeah, yeah. So I pick the

Susan Keuter 1:06:10
the end game is the same,

Scott Benner 1:06:13
right? It's just that this is the thing I'm good at talking about around diabetes, just as you're you're very well suited to talk about your thing. I mean, if there's another way to do something, I'm not saying there isn't. I'm just saying I don't know how to talk about it. And where we kind of run into trouble sometimes is once you reach scope, like when you actually are reaching people, there can be a feeling of I have to keep these people here. These are my numbers. These are my clicks. They're my likes, they're my downloads. I don't think that way, if someone listens to this episode and goes home and eat low carb, I want to listen that damn podcast anymore. Good. Good on, like, I think that's terrific for them. But okay,

Susan Keuter 1:06:54
you don't have to know how to dose for protein. You, buddy, listen,

Scott Benner 1:06:57
I think God would help you. Yeah, I think the podcast would help you otherwise. So I'm just saying if they should come to that, like if somebody right now is having a moment where they're like I'm getting out of here. This is terrific. I would not think of that as a loss listener. I would think that I think of that as one more person who I can sleep well at night thinking is going to live well. Right, right. And so I do think there are places, you know, on Facebook that prize their numbers, and they don't want you learning something that might take you out of their space. And I met that Yeah, and I just don't feel that way. I think whatever works for you works for you. There's, you know, it's funny, there's a it's funny in that on the Facebook page, you subscribe to a tone that I'm very comfortable with you having access to the people who I've collected together. I hope that makes sense. But that's not the tone that you hit me with an heiress.

Susan Keuter 1:07:54
You know, right. Because it was because I knew I knew you. You were flitting around the room am amped up on caffeine. I assumed passing out your little magnets that said Be bold with insulin. And I was sitting there going, Are you shitting me? Like, that's his slogan?

Scott Benner 1:08:15
I didn't make it up. The people listening did I

Unknown Speaker 1:08:17
understand?

Susan Keuter 1:08:19
But and I'm like, being bold with insulin. It is a frickin dangerous liquid.

Unknown Speaker 1:08:25
I know.

Unknown Speaker 1:08:26
You can't take out once you put in.

Scott Benner 1:08:29
I know. I know. I know.

Susan Keuter 1:08:30
But I sat at my table with my friends who similar minded to me. Yeah. And I'm like, how about Be gentle with carbs? How about Be gentle with carbs? And I sat there snarkily. And that's why Vicki kidnapped you and drug you over to me or drugged me to you. And? And because I mean, I get it. I get it.

Scott Benner 1:08:56
Yeah, no, I wish I wish we had time in that moment to have this conversation at the same time. I'm glad we didn't and that things went the way they did. We're having it here. And not to say that we were in any kind of like, you know, Bloods and Crips kind of a feud.

Susan Keuter 1:09:08
Or no, no, no, don't anybody under No, no, no, you came over to me very kindly. And you said, Hey, I heard you eat low carb. And and I don't have a problem with how anybody eats. And I'm like, and neither do I. Yeah. I said, but I think there's a better way to do it.

Scott Benner 1:09:22
No, no, it's a great example of how not all of the information can lead to feelings that are not accurate for what's really happening. And I'm in a weird position where they tell you bring something so that people can find your website and I can only afford magnets so they're cheap. Like relatively speaking, and I've learned that I'm I'm the you know, I'm but what is it the bottle washer, the brush cleaner, whatever. Like I have to do everything when I got to go give the talk and hand out the magnets and do all the things and in my heart, just know when I'm going around that room, I'm thinking I hope This makes sense to this person and that they go find more information that will help them because everything I say in that hour is not going to fix your situation.

Susan Keuter 1:10:08
Oh, no, there's no one. It's not fixable in an hour, right period. Yeah, you just can't not, you can hardly it's hardly introduce a ball in an hour, right.

Scott Benner 1:10:17
But now that you know what the podcast is, unless you were in such a haze of hate that you couldn't think, did I do a pretty good job in an hour of like, synopsize? it?

Unknown Speaker 1:10:26
synopsize? Yes, yeah,

Scott Benner 1:10:27
right. That's all you can do. If I start talking about one topic, the entire hour will get eaten up by that topic. Right? So it's been my finding that if you take a person who's completely believes that their blood sugars are just gonna bounce around like this forever, and you show them a graph, and you go, look, here's a person whose graph looks like this. Then they listened to the podcast spoke to him for a little bit, and then their graph looked like this. Yours could to an actor. Yeah. And it's important while you're explaining it to them, even though people don't like to hear it to tell them. My daughter's a one C has been between five, two and six for seven years. And she doesn't have any dietary restrictions. I'm not saying you shouldn't have diet restrictions. I'm just trying to put in one sentence into someone's head, that all the things that you think are impossible might not be Let's go find out what those things are together. It's just I've boiled the whole thing down to T shirt slogans so so that I can get them out on time. And no lie. You've listened long enough. Now, you know that the titles of the episodes are almost meaningless. And so I something

Unknown Speaker 1:11:31
more fun and very funny. I'm

Scott Benner 1:11:32
really hoping that I get a good one. Oh, see, yours is the Halloween stuff. So you're just it's just gonna be how we eat low carb. See, though you have to give me a subtitle, the subtitle I will think of a good subtitle but

Unknown Speaker 1:11:44
other than our sister, but

Scott Benner 1:11:47
I'll put that in there for you. But what happened was that very on in the podcast, when I was just sort of talking my way through it, I was just, I was by myself in this one episode. And I just said that I realized at some point that I needed to be bolder with the insulin, like it wasn't a catchphrase, it was something I said, in a long line of other sentences. Write and then I go back and edit it. And when I'm editing, I hear something. I'm like, Oh, that's the title. And I put it in there. And then no lie, Susan. Years later, I started seeing people referring to themselves as being bold with insulin on other social media platforms. And the first time I saw it, I thought, I can't be a coincidence. Yeah, right. And then so I kind of picked around a little bit actually reached out to someone I was like, Where did you get that from? She's like, I listened to it on a podcast. She didn't know it was me. And I was like, cool. And then I watched it grow and grow and grow. And then much like how people eat what I took from that was, this is resonating with people. So this must be meeting a need for them.

Unknown Speaker 1:12:48
Yes. So then I started saying and meeting a need.

Susan Keuter 1:12:52
Yes, there. There are so many needs and and there needs. The medical community needs to teach people how to Bolus accordingly. For however you're eating, yeah, they need to teach them about dosing for protein, they need to do some about or talk to them about dosing earlier before a meal and doing a correction bolus, and they need to stop freaking people the hell out about stacking up insulin. And but they also I think, I think what makes me sad, and what literally brings me to tears after talking to some people is that nobody talks to them about any other ways of eating. But I do know I didn't say I'm in medical community, health endocrinologist you're sent to after you leave the ER or life flighted with your eight year old.

Scott Benner 1:13:46
You talk to any doctor privately and ask them what's the first thing they should be telling the person they'll gonna tell them that it's about how they eat, but nobody does it because no one listens. And so they don't waste their time on it. They go right to they go right from preventative, which eating well would be preventative. And they go right into, well, let's manage the lifestyle that you have. And I think that I think that people deserve at least that much. And then maybe they can get their blood sugar's together and feel some you know, control in a good way, and then start making decisions for themselves because maybe I always kind of dream that sometimes people will eventually go Okay, look, I can Bolus for a pop tart. But that doesn't maybe mean I should eat a pop tart. And I and I tried to mention that as frequently as I can, that that you cannot confuse health with being able to manage insulin.

Susan Keuter 1:14:46
Like just because yes, yes. shouldn't confuse you can eat that too. You should eat that.

Scott Benner 1:14:51
Right. It's the line from Jurassic Park when Jeff Goldblum says you know something about like, just because we can doesn't mean we should and so I could probably I probably is the I could there's not much I can imagine my daughter could could ask me for food wise that I can't control with insulin, I have a really advanced idea of it right? But that doesn't mean that I sit her down with like a feed bag. Oh my god, just keep eating,

Susan Keuter 1:15:18
you know, like that. Think you give that impression, I've never gotten that impression I tried. But it's the other line that I love is you don't know what you don't know. And I don't know how many dozens and dozens and dozens of people I've talked to face to face in my own town. When I travel. When I email and message with people that they didn't know that reducing the number of carbs they eat, could make a difference. Because they were assigned in the hospital to 60 grams of carbs a day and a 25 gram carb snack between two meals and before bedtime. And I like and you're wondering why you're a one sees double digits.

Scott Benner 1:16:04
The one thing that doctors at diagnosis don't do that they should is lever that we leave you with the impression that this is preliminary management. And this is going to change.

Susan Keuter 1:16:15
Yep. But But people here. You don't have to change anything right now.

Scott Benner 1:16:19
You don't have to change anything, right? Don't just eat just how you did. I always use as an example that I was given handed novolog for my daughter and the words were This is her insulin. And I have since found that a different insulin works better for but it was very difficult in my own mind to make the switch because amandla white coat told me this was insulin I didn't even imagine there was other insolence.

Unknown Speaker 1:16:45
Right? You know,

Scott Benner 1:16:46
for years, I didn't know there were other companies making other insolence in the beginning. And that's the same thing. You're saying that someone tells you something and in that horrible moment of your life, it sticks to you like gospel. And what if you get bad information now that that bad information stuck to you that way? Okay, so let's take a couple if you have a couple extra minutes I know I've got you over time I'm sorry. As I'm just happy I got out of Arizona imagine how you could have shot me if you wanted to. Oh, no, no, I

Susan Keuter 1:17:13
don't carry gun I

Scott Benner 1:17:14
just met the gun was there seem laxed and so when people are shooting plants on the side of the road, I assume I'm not safe anywhere. But I'm also I have to say that as soon as I landed in Arizona, and I was in a car leaving the airport, you know, Vicki's with me in the car. We don't really know each other all that well. And I'm immediately just like, oh, look at all the cactuses like,

Unknown Speaker 1:17:36
cacti everywhere.

Scott Benner 1:17:38
I love them so much. So I was immediately an idiot talking like that. But I'm sure help me understand how you're making things and I'm not being reductive. I just don't get it. Like I eat in some low carb food before that's supposed to mimic higher carb foods. And while some of them seem okay, to me, there have been some that have hit my tongue and I've like I've like stuck my tongue out. Like just try to knock it off because I was afraid of it slid off my tongue. I taste it more. So how do you do that? Like, how are you making? Or do you not know the difference? Because you haven't had sugar in forever? I I?

Unknown Speaker 1:18:15
Um,

Susan Keuter 1:18:17
I am I think what they call it is an avoider. Like if, if, if you're given the chance to abstain or avoid. I think that I don't remember what that's from anyway. I just I mean, we my children were young. I didn't buy Oreos. I mean, we didn't have birthday cakes. Okay, because it was just easier for me to just not have it. Sure. It was just it as long as I could avoid it. It was fine. Now I'm better now that I'm older so I can buy Pringles for my, my husband and my granddaughter does eat applesauce, applesauce every once in a while. But I don't it doesn't bother me. So now I can say I'm I do. Okay, abstaining. But I don't have a sweet tooth. Literally. I could be sitting here next to a Baked Alaska with hot budge and cakepops. And I know I'm sipping water. They I don't have a sweet tooth. I really

Scott Benner 1:19:20
don't. That is important to say because some people don't. And it is easier for them. It's well

Susan Keuter 1:19:27
and and it's I mean, I think it's just because I abstained for so long, right? I mean, I just didn't have it. Why would I bring chips all into the house for my children and husband? I can't have any

Scott Benner 1:19:38
Yeah, no, I I don't have an addictive personality around certain things that cripple other people like if you give me a pack of cigarettes, I would not enjoy it, but I could smoke them all and never have another one. Right and and I don't drink but if I could have a beer easily, and it wouldn't make me think I should have another beer. Right? And so that's just my brains wired. That way, but sugar for me is tough. Like if I I need to limit my sugar during the during a day in a week, and if I lean into sugar too much off off a cliff. Yeah, that absolutely happens to me.

Susan Keuter 1:20:13
And I think that that most people that follow a standard American diet

Unknown Speaker 1:20:17
do

Susan Keuter 1:20:18
yeah. And you know, I hate I hate the phrase. I've used hate a lot so far. I don't mean to do that. Um, I hate the phrase, a cheat meal. Did you cheat today was today a cheat day? Oh, I, I fell off the wagon. I cheated.

Scott Benner 1:20:33
But it's the language of a person who doesn't want to be on the wagon that they're on?

Unknown Speaker 1:20:36
I think so. Yeah.

Susan Keuter 1:20:41
And so I don't cheat. I just, I just made a decision that wasn't the best for me at the time. And, and I can admit to it,

Scott Benner 1:20:48
I have an avoidance I use so if I feel my like the need for like sweets, I grab, I have a bag of I have two bags of chocolate chips, like high quality chocolate chips in the cupboard. And I take some semies and some milk ones and I mix them together and I eat them. And that's enough for me, but it's not super processed. Like if I would have taken it. If I take a handful of m&ms in that scenario. Yes, then I start heading off the cliff. But if I take just pure chocolate, I'm okay. And then that's like it's like methadone for food. For me. I just take a little bit of it and keeps me off the rest of it is how it feels. But if I catch myself feeling that way at the grocery store, and buy some like sugary candy or something like that, yeah, I'm not mindful of it. I'll spend the next two weeks stopping myself from eating candy.

Susan Keuter 1:21:39
Right, you know, which just shows the power of sugar. Yeah, that's what that does. I mean, you're a grown man with a decent amount of intelligence behind you. I'm going to assume what you project on the internet. So you know that that's what happens. But you are still swayed by it? I mean, it's it's powerful. Is it powerful drug? It is

Scott Benner 1:22:02
decent amount, by the way is neat is neither insulting nor complimentary. Sorry, no, no. I felt like you did it on purpose. I was just

Susan Keuter 1:22:13
I mean, I always assume the best. That's my mama bringing me up that way. You always assume the best and everybody I that? Yeah.

Scott Benner 1:22:19
You're very tired. I think I'm bright enough. And I think that that doesn't help me in that situation. Yes. Okay. Yeah, it would be like saying that, you know, somebody with a 160 iq couldn't do heroin. I don't think that's true.

Susan Keuter 1:22:33
Oh, no. Okay. All right. I see your analogy

Scott Benner 1:22:35
there. So it could happen to anybody, in my opinion.

Susan Keuter 1:22:38
Okay, but so you've tasted some things that are baked low carb, I'm assuming you mean like low carb brownies or low carb bundt cake, or low carb cheesecake,

Scott Benner 1:22:47
or some of that pre packaged stuff that some of those companies Hawk when they're like, there's no impact on your blood sugar. That's not what it's like, you know, that kind of thing.

Susan Keuter 1:22:55
So many of those things. They're just lying. I do think that there are some amazing recipes out there. And made with supplies and ingredients that I didn't have 30 years ago or 25 years ago when my kids were children if my kids were children, and I had coconut flour and almond flour, and monkfruit sweetener, and they would have had birthday cakes. Okay, but instead they didn't. And could

Scott Benner 1:23:28
I have one of those cakes and not see the difference? Or what I noticed that it's different, but it's still sweet and there's no aftertaste.

Susan Keuter 1:23:37
I mean, I don't know I my 79 year old father here over Christmas, and I made cinnamon rolls three different mornings. And finally on the last one, I'm like, you realize there's no flour and sugar in these?

Scott Benner 1:23:50
No, cool. And that's something Have you shared that recipe online.

Unknown Speaker 1:23:55
Yes, yeah.

Scott Benner 1:23:55
All right. I'll try that I'll make I'm gonna make your

Susan Keuter 1:23:58
time somebody posts. I want to have a Cinnabon this weekend. How do I Bolus for it? which is of course, an open ended question that leads to 22 more questions. I always post a picture. And that's when I get the hate mail.

Scott Benner 1:24:12
Well, yeah, because well, but keep in mind too, that those two things are in congruence, which is they're not asking you for a replacement for they're literally saying, I'm gonna have a Cinnabon. How do I keep this from but it's also your opportunity to jump in. There's a guy named john on the board who listens and I love I think he's a great guy. And he I think he comes from the very same place that you do his he's just not quite as soft about it. And so he so it feels a little more friction he when he does it not once in a while, I'll send him a message and I'm like, john, I love you. Just dial that back just a little bit.

Susan Keuter 1:24:47
Yeah, and I and I know I mean, my, one of my biggest weaknesses, there's only two, one of them. One of my biggest weaknesses is my filter. And it's the pep talk I got from my husband, this He's like, no f bombs and just you know, rein it in. And

Scott Benner 1:25:03
what are you holding back while we're talking? Yeah. Why are you holding anything back while we're talking? No, I don't think you are.

Susan Keuter 1:25:10
Well, I mean, sometimes I do some. Oh, the last time I got kicked off of a message board. And I've gotten kicked off of one I just got kicked off one last night. While I slept, somebody kicked me out of their new group. Because I tell when when and it's always the mamas. And it's always the mamas under six months in debt to diagnosis, and they're like, what he's, you know, the, the Froot Loops or the or the pop tart, or the, the peanut butter and jelly uncrustables in the lunch box with the Frito lays and the Cheetos and the juice box. And I'm like, oh, if you can just like how about this? How about eggs and some turkey sausage links on big skewers. So they're kind of like corndogs. And it's, it's, I don't want to eat that way. Or I can't do that. And I'm like, well, then that's you being lazy.

Scott Benner 1:26:03
So I will tell you, that's

Susan Keuter 1:26:04
where I get in trouble. When I say lazy.

Scott Benner 1:26:06
I bet you aren't an eight like that for a few years in like younger elementary to middle school, where it was all just whatever, you could easily kind of pack together. And that's not how she eats anymore.

Unknown Speaker 1:26:18
Right? Good. Yeah. It should.

Scott Benner 1:26:22
But yeah, but her palate has morphed as she's gotten older. And she's

Susan Keuter 1:26:27
a teenager. She's I mean, her palate should morph. Yes.

Scott Benner 1:26:30
You know, sometimes when she has like hormones going, she can't stomach the idea of eating meat. Yeah. And then a couple days later, she's like, you know, having a piece of chicken. Right? It's really it's, it's all super interesting. But, um, let's see now. So where you would say that's lazy because you could build a better mousetrap and make a better lunch? And it's there. You don't know that either. They could be working three jobs and have no money. You don't even

Susan Keuter 1:26:57
You're right. You're right. And and that's, that's another avenue where I get hate now.

Unknown Speaker 1:27:03
Yeah, like,

Susan Keuter 1:27:04
I try not to post pictures of ribeyes because you're like, like, okay, let's focus on hamburgers.

Scott Benner 1:27:10
Well, everybody's are expensive.

Susan Keuter 1:27:11
Like, no, but I mean, and and, and, but I'm a Nebraska girl. So I mean, I like red meat. Yeah. But they don't have to be revised. They can mean hamburger and ground turkey and ground pork and pork sausage. I mean, there are so many ways to skin this cat.

Unknown Speaker 1:27:27
Yep. Well,

Susan Keuter 1:27:30
you know, eggs is one of the cheapest, cheapest sources of protein out there.

Scott Benner 1:27:37
I probably have an egg like at least every other day of some kind or another.

Susan Keuter 1:27:41
I'm not a dietitian, tell me once at the Mayo Clinic that I was allowed four eggs a week. And I'm like, I think I had five for breakfast.

Scott Benner 1:27:52
I have to say that I'm really proud that there's a space that I had that I created where you talk and it's cordial. And that some people can come in and find out more. And some people can leave it and walk away from it. I honestly the way people communicate now. Nowadays, I'm just so amazed that it not amazed. I'm genuinely proud that it works that way. I love what you do. I don't think what your husband's saying, when he says tone it down. I here's what I hear if I said that to you. If I was making that same statement, what I would say is, you know, just try to remember that not everybody's where you are and show them what you know when they'll take it or leave it but you can't judge them afterwards like that.

Susan Keuter 1:28:35
But and then I will interrupt you a multiple time is this is this is where then I I start getting my feelings hurt. Which happens it's easy to do is when somebody messages me like oh my gosh, that looks so good. Can you send me the recipe and I copy and paste once again the link and the this and I give him my little tips and and then and then they're like, Oh my gosh, I'm gonna try it and then and then. And then they're like, I can't keep this up. I can't do it. Right. And, and I'm like, I post almost all of my food that I eat. Seriously, most of it is the most mundane, boring, non recipe required. stuff. I mean, I don't have cookbooks. I think I have one low carb cookbook. Because seriously, I'm just making dinner. grilled meat roasted meat stew, meat, BBQ meat, whatever. airfryer, veggie roasted veggie pan fry or saute a veggie and put a salad with it. And when did that become so dangerous?

Scott Benner 1:29:51
Well, I think there's been time consuming and difficult. Right, right. Well, I don't know. But I also don't like I don't know. I don't know their life though. So I don't like

Unknown Speaker 1:30:00
No, right?

Scott Benner 1:30:00
I have no idea, I can tell you that I have a job where I get up in the morning, I take care of my dogs and my family. And then I record a podcast and I edit a podcast and I do some things. There's also been times in my life where I've had to get up at five o'clock in the morning, drive an hour to get to a job where I worked my ass off and could barely hold myself up when it was over at the end of the day and had no money to show for it. And so, I mean, it for somebody it is for every

Susan Keuter 1:30:27
job. So what here I am, again. So what, what if you're paying a lot of money for insulin? Because your kid is using a ton of insulin to cover what

Scott Benner 1:30:43
if I've got insurance? And it only cost me $20? Well,

Susan Keuter 1:30:45
I mean, I assume? Yeah. Okay.

Scott Benner 1:30:48
All right. So So I think the point is, is that it's just not everything's not right for everybody, and you might not be right on it. And you you might be 100%. Right, and that doesn't change the rest of the conversation, I think,

Susan Keuter 1:31:04
right? And so what I love when I love talking to people, when they say, I'm going to try this for a week. And then usually the first thing I say is, you know what, try it for a day. Start with one meal. Okay, start with a meal. It's a good idea. And I said and I every time I give somebody or link it on the on your page, to the low carb recipe for pancakes and waffles. I'm like, don't make a big production about this mom. Don't be Hey, Jr. We're trying something new tomorrow. It's different. It's not going to be Eggo. I mean, don't make it. It's a sales job. That's what we have our job as parents is salesmanship

Scott Benner 1:31:45
I have to say that we don't use a syrup called carries. It's very like a low carb syrup. And if you gave me real maple syrup, or like any off the shelf, like pancake syrup, everyone in my family would probably get a brain freeze from it. Like Like we you know, you'd probably like oh, my God, all the sugar, like, like you just like, we definitely couldn't do it. And that's a switch we made like throwing a switch when Arden had diabetes, like Alright, we'll just you know, we'll buy this one instead of that one. And it does make a difference. I can see where people would be shocked by it. But But yeah, you can't go from Mike and ikes to low carb and not think that somebody is not going to go This isn't as much fun. Yeah, like, of course, it's not good. But

Susan Keuter 1:32:28
I have I have a hell of a lot of fun, Scott.

Scott Benner 1:32:31
No, I imagine you do. And by the way, I put a mic and like in my mouth the other day and spit it in the garbage because I was like, What is this? It was laying around that I popped in my mouth. And I'm like, this doesn't even taste like anything. It's the weirdest thing ever. And I and I would probably in my mid 20s have grabbed a little box of Mike and ikes leaving a 711 at lunchtime and not thought twice about it.

Susan Keuter 1:32:50
Mm hmm. You know, as soon as they figure out how to make low carb, good and Pliny's. I'll be all over again. Right? Yeah.

Scott Benner 1:32:58
Okay. Well, I genuinely I know. I kept you long. I apologize. I love this conversation. I'm very happy that you did it. I want to thank you for your time. You know, of course, thank

Susan Keuter 1:33:07
you for letting me speak because I ultimately you and I have the exact same goal, you know, every diabetic to have normal numbers.

Scott Benner 1:33:17
And I don't think that most people it's possible. I don't think that most people with a message that's even similar to yours doesn't have the same goal. I think that some people are better at delivering it than others. And when it ends up being like, eat like you're proselytizing, then that's where I think it gets contentious among people. Like I think that I think you're not, I think you're you're accepted very well. And in my group, it because I'm surprised that you get kicked out of other groups. If you're not if you're acting the same somewhere else, then I don't get that. But there are people who will proselytize. And then that's where you start getting divisions and people start yelling back and forth and trying to make points like, Well, yeah, but you're spending more money on insulin, you're like, well, but like, when that starts happening, you're lost. Like, like, no one's coming out of that. So I think long form conversations help that too.

Susan Keuter 1:34:09
Well, and I mean, I've done this a lot of years. I keep saying that. I've done this a lot of years. And if if something that I say or if something that I share or or an idea that that gets repeated can help somebody miss some of the steps that I did. Like, yeah, I mean, I've had the ambulance called two times in my life traumatizing Yeah. If I can make sure that see I'm gonna start getting choked up here.

Unknown Speaker 1:34:45
wasn't gonna cry, you're gonna cry crying,

Susan Keuter 1:34:47
I can make sure that every single newly diagnosed kiddo could never see the inside of an ambulance. That would be the best day for me. And if so, thing I say, could help that. Then I'm gonna keep saying it. I agree even even if 90% of the people go, Oh, God, here's Susan, again with her three day meal plan.

Unknown Speaker 1:35:11
Well, let me that's fine.

Susan Keuter 1:35:12
I don't care. I don't care that those aren't. That's not my audience.

Scott Benner 1:35:16
Let me agree with you. First of all, I agree. Second of all, I think you can do that and eat carbs if you want to. But I think if you can't, then not eating carbs and accomplishing it is a great idea as well. I think whatever works for you is what works for you. I also don't want you to imagine that the crap you get from some people, I don't get to,

Unknown Speaker 1:35:38
I'm sure you do. I'm

Susan Keuter 1:35:39
sure you get it tenfold.

Scott Benner 1:35:41
I agree. Well, I have a lot of people like to write me long letters about what I don't do, right. And so what I've learned to do is exactly what you just said, that I've seen that more that there are people who are helped by this podcast. And as the podcast grows, and the scope of it gets bigger. My imagination tells me that means that somebody heard it, it helped them and they told someone else about it. And say that's what that growth tells me if the if the podcast were to stay stagnant, or to drop off, I would think, okay, my message is not resonating with people. And I might just stop making the podcast I don't know. But as as it continues to grow to me that says there's value in it, and value in it. And so when I get a letter from someone who says, I don't like the way you did this, you talked over this person, you didn't let this person say something, blah, blah, blah, I say to them, maybe I did, I'm not perfect at this, there are times I do a better job than not than others. But also, you have to admit that there's something about my sensibility that makes this Listen, double, because you can put great information in things and people don't listen to it. You can write something, it's amazing. They might not read it. So I think they're, I believe that. It's as much about how you deliver the message as what the message is. And that's what I try to stick to. And I think that's what you are good at. And it sounds like with that gentleman in your house getting better at every day. I think by the time you're 220

Susan Keuter 1:37:12
you have a much bigger audience than I do. My little Facebook page has like 600 likes and you have a bigger audience. What's your pitch? Tell people? The T one D Mimi. Oh, cool. Yeah. Yeah. But, and every time I'm like, I'm just gonna not post anything this weekend. It's It's okay, whatever, no one's reading. And then I'll get a message that has me blubbering at my kitchen table. Yeah.

Scott Benner 1:37:36
Well, listen, I agree. I'll tell you right now, if you want to take your most popular recipe, that's the easiest to make. I'll put it on my blog for you. Like I would I would love to show it to somebody I'm happy to I'm I don't. This how we eat episode. Episodes to me are about saying there are a lot of different ways. The also, by the way, you pointed out really well earlier that just because we're branding, everything right now, doesn't mean it's all new under the sun. like nobody said you were low carb in 1992. You just took the roll off of your cheeseburger.

Susan Keuter 1:38:07
Exactly. Exactly. Right. And that's Yeah, because I figured out I mean, kind of let me Let's face it, Scott, I was doing your job. 35 years ago, I was figuring out there that are insulin that I was supposed to take as I took my first bite wasn't covering my hamburger bun. Yeah. So Screw it, take the hamburger bun off. I

Scott Benner 1:38:28
don't care. Let's make it easier. Look, there was the guy. I had a guy on six in the last six months who was talking about just eating like a carnivore diet. And while he was talking, I heard him I thought like, Huh, this works for somebody great. Like, I don't think I'm gonna do it. But I understand.

Susan Keuter 1:38:46
Right? Didn't you try it?

Scott Benner 1:38:47
I did try it a little bit after a while. I'm like, I don't want all this meat. But yeah, I

Susan Keuter 1:38:53
couldn't do that. Because that's, I don't need that much fat and, and I like I miss I love veggies. I mean, I Oh, veggies. Like,

Scott Benner 1:39:00
I don't need that much fat as important. I'm sorry, we'll let you go. But there is I've learned an amount of as crazy as it's gonna sound sugar. And it's not a lot. But if I go completely off sugar, my insides don't work as well. I need a tiny little bit but not like pouring it on things. I mean, like, I need stuff that has a little like a, you know, if you make a, you know, tomato sauce, it might have a couple of tablespoons of sugar in it. You know, like, like, that kind of thing. Okay, just a little bit of it is better for me than none. And when I go completely off sugar, I don't do as well. And I'm not saying

Susan Keuter 1:39:37
we haven't gone off of it long enough.

Unknown Speaker 1:39:39
It's possible.

Scott Benner 1:39:40
But you're saying no, I 100% could believe that. But I also too, and I got other stuff to do. No, I'm sorry.

Susan Keuter 1:39:47
And I'm all for like, I mean, what i say i'm i'm grumpy. I'm lazy and I'm old.

Unknown Speaker 1:39:52
That's

Susan Keuter 1:39:54
mine works for me. And I wish I wish more people would be open to at least trying it out. trying it with their kiddos. I had a kindergartener in my class last week T one D. I went into the teachers lounge at lunch and just put my head down and cried.

Unknown Speaker 1:40:13
They had blisters all over the place already. I

Susan Keuter 1:40:15
saw what he had for breakfast, I saw what he had for snack. And I walked him into the lunchroom and opened his lunchbox with him. Yeah, and Hey, knauz ating physically nauseous because of what those numbers look like to me. And I I do not blame his mama. Absolutely. I do not blame his daddy. Definitely don't blame him.

Scott Benner 1:40:39
I think that most people will figure out how to eat at some point. I really do.

Unknown Speaker 1:40:44
Like, I hope so.

Scott Benner 1:40:45
I hope so. So I think I'll leave you with this idea. The people you see online are a very small fraction of the people that exist.

Susan Keuter 1:40:54
Oh, they are definitely right.

Scott Benner 1:40:56
So there are plenty of people who have that problem, they get help, they figure out how to do it. And then I think they move on to a part of their life where it's not an issue anymore, and they don't have to worry about it. So that's always my knock on wood hope. But I really really this was terrific. I really appreciate you doing this. And I want to thank

Susan Keuter 1:41:14
you. I mean, it's getting hot in the closet now. So

Unknown Speaker 1:41:16
I'm gonna open the door. Now let you out of the closet.

Scott Benner 1:41:22
A huge thanks to Susan for coming on the show and talking about eating low carb and of course the rest of her story. Thanks to to Dexcom makers of the G6 continuous glucose monitor and on the pod makers of oww the Omnipod actually it's insulin who makes Omnipod but I don't usually say it like that. Because Dexcom makes the G6 but on the pod makes the Omnipod isn't that interesting branding information? Not really right? MyOmnipod.com/ juicebox get your free no obligation demo or see if you're eligible for that 30 day trial of the Omnipod dash and of course at dexcom.com/juicebox. You can learn all about and get started with the Dexcom g6.

I know that we mentioned the Facebook group for the podcast a couple of times. It's called Juicebox Podcast type one diabetes, just search it there's a couple of questions that make sure you're not like a spammer and then you're in. That's it. Thanks so much for listening. I'll be back soon with more episodes of the Juicebox Podcast.