#1581 Runnin' Down a Dream
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Adam, diagnosed with T1D at 39, is now a passionate runner and hiker—thanks to his wife, who pushed him off the couch and into the woods.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends, and welcome back to another episode of The Juicebox podcast.
Adam 0:15
My name is Adam redling, and I'm a type one diabetic that was diagnosed at the age of 39, years old. If
Scott Benner 0:25
this is your first time listening to the Juicebox podcast, and you'd like to hear more, download Apple podcasts or Spotify, really, any audio app at all, look for the Juicebox podcast and follow or subscribe. We put out new content every day that you'll enjoy. Want to learn more about your diabetes management. Go to Juicebox podcast.com. Up in the menu and look for bold Beginnings The Diabetes Pro Tip series and much more. This podcast is full of collections and series of information that will help you to live better with insulin. Please don't forget that nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. This episode of The Juicebox podcast is sponsored by the Dexcom g7 the same CGM that my daughter wears check it out now at dexcom.com/juicebox, this episode of The Juicebox podcast is sponsored by Omnipod five. Omnipod five is a tube, free, automated insulin delivery system that's been shown to significantly improve a 1c and time and range for people with type one diabetes when they've switched from daily injections. Learn more and get started today at omnipod.com/juicebox at my link, you can get a free starter kit right now. Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox
Adam 1:55
My name is Adam redling, and I'm a type one diabetic that was diagnosed at the age of 39 years old.
Scott Benner 2:05
And how old
Adam 2:06
are you now? I am currently. Had to think about that for a second. 42 I will turn 43 this August.
Scott Benner 2:13
You're almost for about three, four years, then going on three. Oh, really. Okay, so kind of
Adam 2:21
Yeah, I was diagnosed a month before I turned 40.
Scott Benner 2:24
I see okay. How about other issues through your life? Have you had any other health issues prior to this?
Adam 2:30
Nothing, autoimmune, no regular stuff. Yeah. I mean, I've always considered myself to be a pretty healthy individual, but as I go back through my chronological health history. After being a diabetic, I realized that I did have quite a few things happen to me throughout my life. I herniated my back twice, which never resulted in like surgery, but was pretty debilitating for quite a fair amount of time. So I've had like health implications, but nothing, nothing
Scott Benner 3:02
related to autoimmune Hey, how do you herniate your back
Adam 3:05
twice by having terrible posture and sitting a lot, crouching over and just doing the same thing bad over and over and over again, and it's literally the straw that broke the camel's back type of situation.
Scott Benner 3:20
No kidding, and you're Joe Camel in this scenario, I am. Yeah, yep. So you herniated a disc,
Adam 3:26
yeah. So I herniated between l4 and l5 okay, caused, the first time it happened, it caused my left leg to go numb, and the second time it happened, it caused my right leg to go numb. So two different times, probably four or five years apart in my 20s,
Scott Benner 3:42
what did they do for it? Did you get treatment, or was it just rest? How did you handle it?
Adam 3:47
PT, so a lot of physical therapy. I got some steroid injections to, like, reduce inflammation, and then just a lot of stretching, just because I was really not active in my 20s, when I was in college, okay? And so I was just really, just terrible flexibility and mobility. And so that led to, I think part of the reason that I actually herniated the disc to begin
Scott Benner 4:11
with. This is going to sound a little Hocus Pocus, but any huge stress things around those times as the
Adam 4:17
first time it happened, it was right after graduation. So I had my first
Scott Benner 4:20
job at that point, that was not a stressful time. No, not,
Adam 4:25
not, not in hindsight, not at all. I loved having my first job. I loved getting out of college and starting to feel like I could breathe in the real world a little bit. I enjoyed that time
Scott Benner 4:36
in my life. I'm just a bit of a believer in John sarno's books about back pain. So I was just wondering if maybe there was a if your brain wasn't trying to distract you a little
Adam 4:47
bit. No, I don't think so. I mean, I remember when I sent my PT report to a friend of mine who was in college at the time, she told me that I had the worst mobility of hand. String that she'd ever seen in a report. So, like, fun, that it was bad, yeah? But that's, I mean, I it's a good transition, right? That that's what got me into running. Yeah?
Scott Benner 5:11
I was gonna say in with you're an active person today, right? Very
Adam 5:15
active. And that started that whole process was I started running as part of my physical therapy after I got back on my feet, and a year to the day of herniating that disc, I was running my first 5k How about that? So that's really what got me to become a runner, and I'm still a really big runner to this day. So
Scott Benner 5:42
you're here today to tell people that running causes type one diabetes.
Adam 5:45
That's exactly right, yes, yes. That's what I think, correlation, not causation. No, of
Scott Benner 5:50
course. Yeah, yeah. Okay, right. Right after college, you begin, you became a runner, went right to a 5k in a year. That's pretty awesome. Like, was that hard to do? Like, from sedentary to a 5k Yes,
Adam 6:02
it was. It felt like such a step change in my physical activity at the time, because, you know, I was, I went to college for four or five years. Like most engineers, I took a five year path. A lot of that was spent sitting and studying, not being active at college, I can remember when I started dating my now wife. At the time, she was into hiking, and she was kind of appalled at how inactive I was, and so we started hiking together in college. That was probably the only physical activity I got. But it was telling to me that, like, I really didn't get out a lot in college,
Scott Benner 6:47
I was busy studying. Did you want to hike, or did you want to see her without her shirt? What was little bit from column A? A little bit from column B, I guess you did want to get moving? Then a little bit No. I mean, it was
Adam 6:57
part of the development of our relationship, right? Was spending time together in the woods and kind of losing ourselves in the woods. And we still do that today, and that's a big part of my life is kind of going and getting into the woods and just being disconnecting. Quite frankly, it's, it sounds cheesy, right? But it's like a huge I find it to be a huge therapeutic exercise for me.
Scott Benner 7:26
I would tell you it sounds cheesy if I didn't, a week and a half ago, tell somebody that during the day, while I'm working, I enjoy turning around, looking into a terrarium, because there's like, plants and dirt in there, and I can't get outside at that moment, but it, it is actually valuable. Yeah, yeah. So actually getting out in the woods is, you know, a different thing, yeah. Do you have kids? I do. I have three kids. Oh, wow. You take them out with you, I imagine, yes, yes, definitely. Do they all enjoy it? Or do you have one that doesn't love it?
Adam 7:58
No, they're all into it. They all love it. Yeah, everything's great, yeah. How old are the kids? 12, nine and six? Oh, was the three year thing on purpose? No, it's CL and right now it's three, but it's closer to two and a half. Three and a half,
Scott Benner 8:13
okay, yeah, your wife's just interested in you on a schedule. It sounds like That's right, yes, about every two and a half years that a bell goes off somewhere and you're like, oh, it's time again.
Adam 8:22
That's it. Spot on.
Scott Benner 8:26
Adam's like, Oh, I see you've been married. So when you're diagnosed at 39 telltale signs or out of nowhere, how did it hit
Adam 8:37
you? I was training, so I was getting ready to turn 40 that year, obviously, and like, like a lot of other people, I kind of felt 40 as a big number for some reason. And so I had been running half marathons for a decade, both on the road and in the woods, on trails. And I think when I was getting ready to turn 40, I said, I'm going to run a marathon this year, because I've never done that before. Okay, and I couldn't find any trail marathons that were available to me, so I skipped over the marathon and started training for a 50k the year that I was turning 40. So I was in the process of training for a 50k that was in October of 2023, when I was diagnosed. So I was, like, mid training to get ready for that. And so, like, I started losing weight, which shouldn't be surprising, right? I'm running 20 miles a week, yeah. So I lose a few pounds, whatever great side benefit. Right in the middle of all this training, our family took a big trip to Italy as part of my mother's 70th birthday, and so I went with my mom and my sister and my whole family to Italy for two weeks and a nothing but pasta, pizza. Pizza, gelato, pastries and wine for two weeks, and didn't really run a lot in Italy. Okay, we walked everywhere, obviously, but, like, I went for like, one run in Venice, and that was it. I see, yeah, we came home. I get on the scale again. I was like, Huh? I lost a couple more pounds. That's interesting,
Scott Benner 10:24
but now I'm not moving, and I ate like crazy, but I still lost weight,
Adam 10:29
yeah? But then you realize, like, you're like, Well, I walked everywhere. Like, you normalize it, right? Like, yeah, I walked everywhere. Those, you know, there's no preservatives in the Italian like, whatever, right? You try to sell stuff, yeah, oh, they've got better portions there, and it's not America, and I'm not gorging myself, right?
Scott Benner 10:46
Stay here for another year. I'd probably disappear.
Adam 10:50
Yeah. And so then I went to I went to Texas for a conference for a week, and I didn't do anything in Texas. I sat there a barbecue all day and didn't go anywhere or walk or run or do anything. And I came back from Texas and I lost more weight. I lost like five more pounds, but I lost like 15 pounds over the course of like two months, a month
Scott Benner 11:15
and a half the Texas trip, make you question it further. Yeah, and
Adam 11:19
there was other things happening in the Texas trip that I was starting to catch, like, I was peeing a lot and I was really thirsty, and I can remember recognizing that that had started to happen at the end of the trip to Italy, that, like, I was up once an hour in the middle of the night to pee, you know,
Scott Benner 11:38
yeah, Does that ring a bell for you. Like, do you know anything about diabetes or
Adam 11:43
no? Nothing, nothing at all. I have no because I don't know anybody with type one. Okay, so we come back from Texas, we go to a pirates game Fourth of July weekend, and I was so tired and so thirsty that it was, it was comical. And we went to the game, and my kids got these, those giant, like, 32 ounce sodas, yeah, and I drank, like, four of them at the game. Like I drank, which is hilarious, in hindsight, the kid out of the lake, yeah. Like, give me your soda, like, just drank. And I remember, like, they were free refills. And, like, before we were leaving, like, I filled one up for the walk back to the car, and my wife was like, What are you doing? I was like, just so good. The new me, yeah, right. And my sister in law was at the game, and she's a nurse, and I started telling her what was going on. I'd also noted my vision. Noticed that my vision had started to get a little bit blurry too, and so, like I knew something was up, right? I didn't feel well. I felt generally unwell. I was peeing a lot. I was losing weight, like I knew something was up. I had already scheduled, like, a well visit, not even a well visit, but like a sick visit for the my GP, but my sister in law was like, I'm pretty sure you have diabetes.
Scott Benner 13:02
Oh, she just hit you right in the parking lot at the stadium. Just,
Adam 13:05
boom, yeah. And I was like, Okay, well, that would be strange, but Okay, right? And I went into my GP, and I'm surprised, in hindsight, that she didn't finger prick me in the appointment. Like, I'm surprised that they don't do that as just, like a general check on something like that, like they did a kestone strip, and I turned it black, but they didn't finger prick me to check my blood. They just took a blood draw. And then I got called the next morning at like, 7am and she was like, okay, so either you're gonna go to the hospital or you're going to start taking insulin like today at home, if I can get an endocrinologist appointment with you. Okay, yeah. So I learned how to inject insulin over telehealth visit, which I think is a pretty I don't know how many people have done that. I was gonna say, did that work? Okay, yeah, it was fine. They showed me how to operate the I was on pens to start Atlantis and Humalog, and I was on pens, and I it was fine. I wasn't squeamish about it. I was totally comfortable doing I see, yeah, gotcha. So, like, my story as, like, a adult onset type one, I feel like is pretty par for the course, to be honest. Yeah,
Scott Benner 14:16
did you feel I mean, obviously they didn't talk to you for very long. They were just teaching you how to. They were teaching you how to kind of get your blood sugar down. But nobody said, hey, maybe we got to make sure you're not. DK, before we start bringing your blood sugar down or anything like that. They just gave you the insulin. Today's episode is brought to you by Omnipod. We talk a lot about ways to lower your a 1c on this podcast, did you know that the Omnipod five was shown to lower a 1c that's right. Omnipod five is a tube, free, automated insulin delivery system, and it was shown to significantly improve a 1c and time and range for people with type one diabetes when they switched from daily injections. My daughter is about to turn 21 years old, and she has been wearing an Omnipod. Pod every day since she was four, it has been a friend to our family, and I think it could be a friend to yours. If you're ready to try Omnipod five for yourself or your family, use my link now to get started. Omnipod.com/juicebox get that free. Omnipod five Starter Kit today. Terms and Conditions apply. Eligibility may vary full Terms and Conditions. Can be found at omnipod.com/juicebox you can manage diabetes confidently with the powerfully simple Dexcom g7 dexcom.com/juicebox the Dexcom g7 is the CGM that my daughter is wearing. The g7 is a simple CGM system that delivers real time glucose numbers to your smartphone or smart watch. The g7 is made for all types of diabetes, type one and type two, but also people experiencing gestational diabetes. The Dexcom g7 can help you spend more time in range, which is proven to lower a 1c The more time you spend in range, the better and healthier you feel. And with the Dexcom clarity app, you can track your glucose trends, and the app will also provide you with a projected a 1c in as little as two weeks. If you're looking for clarity around your diabetes, you're looking for Dexcom, dexcom.com/juicebox, when you use my link, you're supporting the podcast, dexcom.com/juicebox, head over there now, no,
Adam 16:29
nope. And I remember I was talking to her about it, and she said, if you feel like you're dying, you should go to the emergency room, but if you don't, you're fine to stay home. And I was like, Okay, well, I don't feel like I'm dying. I don't feel like I'm well, but like, I'm not, you know, she was asking some pointed questions. Like, are you huffing and puffing when you're going up the stairs, like, all that kind of stuff, right? Are you throwing up? And, like, she was like, if you throw up,
Scott Benner 16:57
go to the ER, like, period. You know, it's great medical care you're getting out there.
Adam 17:01
Yeah? And when I told my sister in law about that, she was horrified. And my my so I what the other sister in law is a doctor. So I have two sister in laws, one's a nurse. I have three. One's a nurse, one's a doctor. When I told them about it, they were checking in on me, like once an hour, yeah? Like, Hey, how's it going? Like they were all over it.
Scott Benner 17:23
I would say Adam, that I don't think a lot of people make an announcement two hours before they die that they're going to die, except for me, I like to walk around going, oh my god, I'm dying. But that's not, that's not the same thing. So, like, it's a weird way to tell somebody about something that they don't know anything about when they're in the situation, like you said you you spike the ketone strip. It sounds like yeah, and then on top of it, they're online, telling you, hey, use the insulin like this. They don't know how much insulin you need. I know, yeah, yeah. I get hindsight probably freaks you out, huh?
Adam 17:52
Sure, not really. Yeah, I'm comfortable with it. I mean, it didn't get me anywhere dangerous. You know, at no point did I go low. I mean, it was concern. And I look back at the numbers I was taking at that point, and they were really conservative.
Scott Benner 18:08
I was gonna say it's not a lot of insulin. And in fairness to them, it did work. How long until you actually see a physician and get some direction? I saw
Adam 18:16
them the next week. I think I got in on like that, Monday or Tuesday the next
Scott Benner 18:22
week, you're not covering carbs or anything like that. You know,
Adam 18:27
I don't remember. It was only a couple years ago. I actually don't remember if I think, I think they just told I think I was just on Lantis and eating low carb for a few days. Okay, I think that's what they did. They said, keep your carbs to like, 15 to 30 grams a meal, and take Lantus. Start checking your blood sugar three, four times a day, start logging that, and then we'll talk next week.
Scott Benner 18:53
No one said to you, your blood sugar could get low. You could become dizzy, disoriented. None of that was information shared. No Do you use the internet or do you just wait for the next week?
Adam 19:03
No, I mean, I'm an engineer. I dive right into the problem head first, right? And I threw my whole I threw everything at it I could right away. And became really well educated on diabetes really quickly.
Scott Benner 19:18
Okay, you didn't even have time then to worry like that, this would get in the way of your activity, or something like that. You figured there was a way around it.
Adam 19:26
Yeah, that's my mantra. Is, can do right? You can figure it out. You can do a lot of things that you might not realize. That's the engineering attitude, right? Is you can, I mean, I say that at work all the time, like when you put a man on the moon, you know, you can figure anything out. Yeah, right. And so this was no different, right? It was like, there's a lot of people that have this disease. There's a lot of resources for people that have this and it was really obvious to me right away that there's people who live their whole lives this way. And it was just another thing to figure out,
Scott Benner 19:57
and you were able to do that with. Information you collected or with your doctor, or a combination,
Adam 20:04
a combination, I felt the diabetes educators at the particular office that I go to were actually they were really good diabetes educators, and were all in on supporting me. I felt really well supported in whatever capacity I needed it. And I quickly just educated myself though by reading and just taking it all in.
Scott Benner 20:25
Gotcha, did you move to pump? Are you still MDI? How do you manage?
Adam 20:29
No. So I was on injections for like, two months, and it was just too difficult to work out with Lantis in my body. You get like, that was that was too hard. Yeah, yeah, lows were, were challenging to navigate. Okay, did you put weight back? No, I didn't. Well I went from, yes, I did. I mean, I put on the 15 pounds I lost through diagnosis. But I've, I've stuck at that number,
Scott Benner 20:55
that number since then, yeah, how have you figured out how to, how to run and, I mean, you're doing it successfully now, and it's part of why you wanted to come on, right? So yeah,
Adam 21:07
and I feel like, in general, that's a gap in that's the gap I always see right, like you go on Facebook pages, whether it's your page or any page, or Reddit or wherever, right? And there's always these new diagnoses or old or older people that have been diagnosed and say, hey, I want to get into running, and I don't know how to do it. I keep going low, right? Like, that seems to be this really common gap that exists, is people not knowing how to navigate exercise. Yeah, right. And I was willing to just go trial and error it and like, I'd go running with, like, one to two units on board, and I would plummet, and I'd be like, Okay, I'm not going to do that again, right? Like, I figured out what doesn't work, yeah. Like, and then you just, like, rinse, repeat on it, right? And you just figure it out. And so I started figuring out, like, really quick, like, Okay, I can't run with Lantis. Like, that just doesn't work. And so I got on a pump I want to so I was diagnosed in July, I was on a pump by September, because when I I ran the 50k in October, I was on the pump. Then
Scott Benner 22:21
that quick, yeah, I was gonna say, because you said you ran that quickly. And I was like, Oh, I wonder if you got low during the run. But no, I is that? No, going to the doctor and just saying, look, I think that the Lantus is why I'm getting low while I'm running. I need to do something about that.
Adam 22:35
No, she was advocating for a pump for me at the same time. Okay. She said, your your lifestyle, who you are, what you want to do, you need, you should be on a pump. And they were even like, we don't know if the insurance will cover it this quickly, but they did, and I jumped right on it and took on I did MDI. Like, if I had to go back to MDI, it would be so uncomfortable, because I did it for such a short amount of
Scott Benner 23:01
time remember how to do it. Yeah. What about a CGM? Did you get a CGM at the prior to the pump, or the same
Adam 23:08
time I did? I was on a libre three for a couple months. I think I finger pricked for like a week before they put me on a CGM. Gotcha. And I was just like, this, sucks. Like this, like, and working out was so hard, right? With finger pricks, right? It's almost like a you have everybody should be on a CGM. Like, it's
Scott Benner 23:30
why was it hard? Just because you didn't know where you were, what direction you were moving when you tried to get active, correct? Yeah, okay. Did you do a deep dive into your family to see if there was other autoimmune in your family, I
Adam 23:41
did. The only example of autoimmune in my family is my fault, and I don't even think this is actually autoimmune. It's not well known, though, something called transverse myelitis, which is an infection in your spinal column that affects the myelins in your nerves. So my dad got that in his 40s or his late 30s, it affected his mobility and some of like his feeling in his hands and feet, but that's the only thing remotely close to autoimmune in my family, okay, all
Scott Benner 24:10
right, and you haven't developed anything since then, no. All right. How about your kids? Are you worried?
Adam 24:17
Yeah, that's on my radar. I've thought about putting them through some of the clinical trials to test for, you know, some of the indicators. I just don't know if I want to have to hold them down for a blood draw.
Scott Benner 24:31
The only they would enjoy that.
Adam 24:33
I don't think that they would now. So what do you
Scott Benner 24:36
do now to go for, I mean, to train for a marathon. Like, like, that's a, I mean, a great example. Like, because people can take your advice, or you know your story, and pare it down to their level of of running. How do you prepare to get up and go for a run? I mean, is it as simple as, like, what we talk about just like, don't run with insulin on board and
Adam 24:55
don't run with insulin on board. Or, very little. How. Have fast acting sugar with you, whatever that looks like for you, Skittles, you know, gummy bears, Gatorade, like whatever fast acting you need be, well hydrated. I found that's to be that's a pretty critical element of it. Yeah, I don't know. I mean, I that's what's funny, right? People are always overwhelmed by the idea of working out,
Scott Benner 25:23
and there's not that much to it. It seems like, I mean,
Adam 25:25
you just have to think about it, right? Just be thoughtful. Like, are you running first thing in the morning? That's probably best, right? You don't want to try to run after you've taken insulin for a big lunch or something like that. Even my experience is, even if, like, you're after, like, the quote, unquote, four hour half life on Humalog or some other fast acting you still have it. Like it's still lingering in your body. Like, even if the controller tells you you don't have anything on board, there's still some there. Yeah, you know. And I've had experiences where I've gone low, like, late in the day on a run. And I'm like, Man, that was really strange. But you realize, like, I took insulin for lunch, breakfast, lunch, a snack and dinner. Like, you've been taking it all day, like, big doses, right, you know? And so I found early in the morning as easiest before your day starts.
Scott Benner 26:16
Get up and run. Get up and run. Yeah, yep. I you know, I think you're right that when you see people online always talking about, like, I can't figure this out. It's, you know, I'm exercising, or my kids go into soccer, or whatever it is, it's always, when you really look at the clock, it's, they came home from school, ate a bunch of food Bolus and went right to soccer practice. Yeah, you know. Or, you know, I got done work, and, you know, I tried to go, I tried to run after work or something like that. Yep. I don't mean to oversimplify it, because there are extenuating circumstances. And I'm not certainly saying that it's as simple as you just laid it out, but it's a very good starting place. Don't run with insulin on board. Don't run with active insulin for a meal. Your insulin on board might look like there's nothing there. But if you Bolus two hours ago for a meal and covered it perfectly, you know, your your pump might say, Look, no, there's no insulin on board, because it all got used for that food, but it's still insulin. It's in you and active, yep, when you start moving, whatever you're gonna do, and then you're gonna drop,
Adam 27:18
yeah. And I think there's even an element of, like, I wonder if there's some physical hold up. If you've taken a big Bolus, it's like, like, they talk about tunneling, right? Like, I think there's some element to that too. Like, you moving around and sweating and being active. It distributes it that maybe it, like, never got used in the first place. And like, I like, I'm totally speculating here, but like, I've seen, I've I feel like I've actually experienced that on the back end.
Scott Benner 27:47
So is that why you brought up hydration? Because you want to make sure that the insulin is being used as you expect it to be used.
Adam 27:52
Yeah. And also, like, if you are, like, I've had experiences where I've been so, like, when you do a really long run, like, when I'm doing these ultra marathons, you need to eat the whole time, right? So, like, you're eating calories and carbohydrates the entire race. And so I've had experiences like, where, when I'm doing that, I'll want, like, my pump will just be put my pump in exercise mode, for example, and I won't, I won't take any Bolus for the food I'm eating, so I'll eat like, 70 carbs an hour, and I won't take any Bolus for it at all, yeah, and I'll just let the basal keep up, like the basal is able to keep up with the
Scott Benner 28:31
carbs, if that makes sense, you get some spike, but it's just not big.
Adam 28:36
Well, you, if you're not hydrated, it can be a big spike, okay, right? But quite frankly, like on race day, I'll be flat. I will be flat as can be. In fact, there's situations where I'll turn my pump off completely during a race and still eat 70 carbs an hour and not go and not go high, like for like the for that first 50k i i ran with the pump off for an hour. That was a seven hour race. I turned the pump off for six hours straight and ate carbohydrates the entire time.
Scott Benner 29:09
And your blood sugar stay down.
Adam 29:10
My blood sugar was flat. Okay, yeah, but it's like paying attention to those types of things, right? Like, yeah, oh, wait, I went high when I don't normally go high. Oh, wait, I was dehydrated, right? So the little bit of basal insulin couldn't get distributed, couldn't get utilized properly, and so the food I was eating was causing me to go hot.
Scott Benner 29:32
And this is not an automated system that you're on. I'm on automated, yeah, and what did you say? You took the pump off for the six hours, turned it off. Turned it off. Okay, so Omnipod, yeah, so the automation wasn't trying to give you insulin during that time. Wait, you put it in manual.
Adam 29:48
I'll put it Yeah, because that's the only that's the only way you can turn it off,
Scott Benner 29:52
right? And then what do you do? Do you go to like a zero temp basal? Or you just put the basal where you like it for the run? If
Adam 29:57
I'm going to keep the pump on, I'm. I'll go into exercise mode in auto. If I want to turn insulin off, I'll just go into manual and just say, pause insulin. Completely. Pause it completely. Okay, yep, which you can only do for two hours at
Scott Benner 30:12
a time. And so you're just, you're very actively paying attention to the, I mean, you're using the thing that you're using, the Eminem story from the Pro Tip series, like, right? Like I did. I tried a little more, a little less, a little longer, a little shorter, until it made sense, and it worked. And then I said, Okay, that's, yep, that's my timing, that's my amount, and you just figure that out for running.
Adam 30:31
That's right. And there's no, like, set it and forget it, right? Like, you've got to be comfortable in like, if you're going to figure out how to do it, you've got to fall flat on your face at some point. I
Scott Benner 30:43
do wonder, I kind of heard what you were saying under your breath there for a second. Like, I do wonder, how many people just go like, I don't know. The machine didn't do the thing it was supposed to do. It's supposed to keep me from getting too high or too low. And then I suddenly went from being very inactive to very active. My blood sugar got low. It didn't work like that. It's never going to work that way. You really do have
Adam 31:02
no it doesn't. You have to own it like you have to own it, and you have to be willing to fall flat on your face, make mistakes and reflect on like, I loved something you said I was listening to the one yesterday. It was the burnout episode that you just reposted. And you said something about, don't ever ignore a learning experience, right? Like, that was the quote I wrote down, because it's
Scott Benner 31:27
wasted time,
Adam 31:28
right? That's it, though. Like, don't ignore those learning experiences, right? And everybody's answer is going to be a little bit different, but you gotta. You're gonna have to figure it out on your own. The pump can't figure it out for you. It can get you close, but
Scott Benner 31:41
it's a tool, right? I have to say that. I know everybody's like, Oh, this stuff's gonna get better and better, and I do believe it'll get better and better, but as it sits right now, I can't imagine a world where nothing ever goes wrong because your algorithm took care of it. There's too many variables. You know what I mean, like you just being alive, just it offers too many opportunities for whatever that algorithm is expecting or or planning on for it not to happen. I
Adam 32:06
agree, and the more I see it like, yeah, sure, the technology can improve, but you have to still, diabetes is yours, like, you have to use these different tools at your disposal to manage it. Yeah, some something else doesn't manage it for you.
Scott Benner 32:21
Yeah, overnight sleeping, pretty awesome. Like, you know what I mean. But then really, imagine why that is. Like, even, even people who are on, like, automated systems who are like, I don't trust the automation, but I do turn it on at night when I sleep right? Like, what's at night? Nothing, no variables. That algorithm like your setting. If your settings are good, the algorithm does what it does. Nothing changes too much. Now I'm not talking about like you're growing children or something like that, but for people who are like not growing overnight or something like that, it made it so rock solid. Overnight. Agreed? Yep, I agree again. Look at why. Because you're not active. Your activity is not changing one way or the other. You're not eating. You're not you know, hopefully you're not digesting food still at two in the morning, you know, like that kind of stuff. So, yeah,
Adam 33:04
yep, you're exactly right, yeah. So I don't know that's what I've done to figure out running. And I mean, I've run several ultra marathons since then, and I have another one on Saturday, so it hasn't held me back. I will share a failure story for running. I was in a 50k and we got rained on, and my whole body got really cold. I had never experienced this before, but the monitor went and read all low, which was the first time I'd ever seen that cap stocks all low. And I was about 10 miles into the run, and, you know, I ate a handful of Skittles, right? Just like ate a ton of sugar out of paranoia. I didn't feel low. But we happened to be getting back to the car at mile 10 of this race, and so I was like, All right, I'll check my fingers, right? I'll do a finger prick at the car, like, I know I've got that stuff there. And my hands were so cold I couldn't get any blood on my fingertips right, because we had been rained on, and it was cold out, the sensor went and told me, like, pour whatever the Dexcom says when it stops working properly, right? Come back three hours. Like, I'm on break or whatever it says out the lunch, yeah, to lunch. Like, come back later. And so I was like, All right, I'll put another one on. We'll keep walking, and I'll wait for the two hour warm up. Like, I'll be good. Like, I went to put the other backup that I had on, and it just like, fell right off because I was all sweaty and gross. And I just, like, looked at my buddy, I was like, it's not gonna happen today.
Scott Benner 34:36
Like, I'm done. You're running. I'm not. I'm going home,
Adam 34:39
right? Like, I'll be waiting for you at the finish line, right, and I'm gonna go hang out. And so now, when I do races, I actually wear two CGM at the same time, so that if one fails, I'm not in the woods blind
Scott Benner 34:52
when the race ends. Like, do you have it timed so well that you you switch to the newer one then, like, it's not like, a. 10, like a 10 day waste. You know what I mean? Like, you don't go running on the first day of a sensor and put another one on, right? You kind of time it out a little
Adam 35:08
bit. Yeah? But right in the SIR, for example, though, right now I have a g6 and a libre three on at the same time. Oh,
Scott Benner 35:14
I see, okay, yeah, it's, right, that's, yeah, I was thinking of it as the g7 because that's what Arden is wearing right now.
Adam 35:21
No, because g7 doesn't have iPhone integration
Scott Benner 35:26
yet, and you like that straight to iPhone. Oh, yeah, you're not looking to carry the transmitter
Adam 35:31
around. No, I'm not into having two phones. You know,
Scott Benner 35:34
I understand. How have you integrated, if at all, your wife into your life with diabetes, because you're together for a while now, and then this big change comes. I'm wondering, Is she involved? Does she understand it? Have you kept her at arm's length? Has she, you know, said, No, I won't understand her. I don't care. It's yours. How does that all work out?
Adam 35:54
She's super engaged in supporting me with diabetes, and always has been, and she's become really well educated herself in what it all means. She follows me. She'll send me a message when I'm on a run, like, eat sugar, right? Like she'll see my trend going low. She's very well engaged and understands the challenges of diabetes, right, without a doubt, and has been like a rock star in the background.
Scott Benner 36:21
That's excellent. That's, you didn't have to ask her at all. No, absolutely not. Yep. Okay,
Adam 36:28
no, that's the relationship that we have, right? Is, it's just, it's a supporting one.
Scott Benner 36:33
Okay, yeah. Can you give me a half a second here? Rob has an editing question about an episode that I have to get back today? Yeah. Do you want your intro for Noah Gray, where you say tight end for the Kansas City Chiefs Noah gray to go right into the bowl beginnings, head and Yeah, hold on a second.
I liked it when I did it. If you tell me to move it. I'll defer you. Look at me. Look at me being collaborative. You know, it's funny. It's crazy that he just texted me about this, because I was going to bring this guy up to you. I was going to say to you, hey, tomorrow, I have an episode coming out with Noah grace, the tight end of the Kansas City Chiefs. Oh, nice. And what I wanted to tell you was that, how many people asked me to ask him about, like, you know, you're playing football, like, at the highest level. You're this giant person. You're running around. How does he manage it? Everybody wanted to know like, like, get his secrets. His secrets were he eats the same thing at a at the exact same time, before the game starts, every time, gives himself the exact same amount of insulin. Yeah, yeah. His secret is, he takes away the variables
Adam 37:49
that, I mean, that's one strategy, right? Is, if you don't want to be super flexible, you can find ways to be more rigid.
Scott Benner 37:57
Yeah, you know, once a week for 16 or 18, I guess you hope for it to be a few more weeks, you know. He does it for, you know, four months or so, and then he goes back and lives his life a different way. The interesting thing to me was all the people at type one reaching out, because I was able to say, like, Hey, I'm going to be interviewing. No, if you have any questions, like, you know, can you put them up? Everybody thinks he knows something they don't know.
Adam 38:18
But I think so. Here's, this is a bit of a pet peeve for me. Noah gray and any other professional athlete or collegiate athlete has resources at his disposal that none of us could ever dream to have.
Scott Benner 38:33
Well, when you hear it, though he's not using any of them, that's fair,
Adam 38:37
yeah. But a lot of these people, a lot of these, that's fine, and I'll listen with open arms right when he has his episode. But my experience is, a lot of these professional athletes or collegiate athletes, they have nutritionists that are monitoring their blood sugar during a game, or they're monitoring their diet, and they've got those resources at their disposal. And I think that may be intimidating to people to hear, right? Well, I don't have that, so I can't do
Scott Benner 39:05
that, so I guess the success isn't mine to have then, yeah, I take your point. It has been my experience when I've spoken to people. I don't know if I've ever said this on the podcast before, but why don't we just go for it? It's been 11 years now. I can pretty much do whatever I want at this point. Adam, I've interviewed a lot of people who are very active or professional athletes or something, whose knowledge of their diabetes. I've been shocked by they don't seem to understand it. To your point, like, I don't know. So their lack of knowledge, their lack of knowledge, stuns me sometimes, yeah, the guy tells me, or, you know, there's somebody tracking me while I play. Or, I don't really know, like, there's just been a lot of like, like, don't get me wrong, like, older guys or girls, like, I get like, you know, I use SAM as an example a lot, who's, you know, used to be a center fielder in the Major League Baseball, and he said this thing that I think I'll never forget, if I was chewing seeds in center field. Old, my blood sugar was okay, and if I was chewing gum, I was low. And, like, that was how he was met. Now, he didn't have a sensor, he didn't have, like, he just felt dizzy and threw gum in his mouth. You know what I mean? Like, crazy, right? Yeah, that, yeah, yeah. But nowadays, like, you know, with all this technology, if I ask you how you manage your meal before you play, and you go, I don't know. I'm like, Really, that's
Adam 40:23
crazy. There's a nutritionist that does that for me. It might
Scott Benner 40:27
be somebody who does the thing now, Noah was pretty cool. Knows, like, look, he did some trial and error. He figured out what worked for him, and he does it now. And great, yeah, now takes his pump off. He wears a tandem pump. He doesn't wear it while he's playing. Told me sometimes he'll pop it back on at halftime if he needs the Bolus. And he was really honest about, like, the thing he's got set up works great for four quarters of football, but that he can run into some issues if a game goes into overtime.
Adam 40:54
Ritz, that tight. Yeah. Wow, that's surprising,
Scott Benner 40:57
yeah. So I think what he's got it worked out so that when that game ends. He needs to get something accomplished, yeah? And I won't give it all away. You guys should go listen to it, because he was really, actually, really good on the show anyway.
Adam 41:09
That's great, yeah? But I think, you know, you see the Dexcom warriors, and you see people going and speaking at conferences and various functions, and they've got that kind of a story to tell, right? Of, well, I don't know if I, if I want to go talk to a nutritionist. They're at my disposal, you know, or they, or they do it for me. To your point, I think that can be intimidating to people exactly like, exactly what you said earlier, right? Yeah. I feel like I'm a pretty average person when it comes to athletic ability, and I've been able to figure it out, yeah, and I feel like anybody can figure it
Scott Benner 41:45
out. You're saying, If I can do this, you can do it too. I Yes, yeah, absolutely. I prefer the stories of, like, I don't know if you ever heard Chris. Chris Dudley was on one time. He's an, you know, by this time in his life, he's an older man, but he played the NBA and with type one, you know, long before any of this was going on, and he just said, like, I couldn't get dizzy. He's like, I'd lose my job. Yeah, that was that. There's nobody protecting him. There was no, you know, there's no ADA standing up for this guy. Like he, you know, I had to do what I had to do, and I had to bounce the damn ball and get the rebounds. And if I didn't do it, I was out of there, yeah? And I was like, I guess that'll get you moving, right?
Adam 42:23
Today is just different, though, right? Like the metrics and studying athletes is just totally different. Makes you
Scott Benner 42:30
feel like there's too many people, like, if, if that stuff's become a job, we ran out of jobs people needed to do, unless you're listening and you do that, and then I think you're a very valuable part of society. Never mind. But, you know, like, Listen, my kid had a job getting out of college. It was not a thing that needed to be done. You know what? I mean, it's a real it was a real, real job.
Adam 42:51
I mean, I think they're just trying to unlock every ounce of potential, athletic potential, out of people,
Scott Benner 42:57
yeah, in general. Well, may I, if I can for a second, since you went to a pirates game in our story here, I will tell you that I think that doing that is somewhat hurting baseball, because instead of baseball, players playing baseball, giant men are playing baseball. It's not always the same thing.
Adam 43:20
It's turning into analytics too, right? And there's a little argument. I'm not a huge analytics nut, but I know that it's changing the game for certain.
Scott Benner 43:29
I don't want to see a six, seven guy running into the corner in right field for the ball, because his brain is saying I shouldn't be doing this. This isn't me, but he can hit a ball a lot farther when he hits it, so we put up with his terrible defense so that he can bat. And then I think you take away a little bit of the athleticism, it's just gonna make sense to people who don't watch or play baseball, but like, there are baseball players and there are athletes, and there are athletes who are baseball players, but there are also athletes who aren't baseball players, and you can see it while they're doing it. Yeah, you know,
Adam 44:01
that's also like, putting in 10 foot person playing in the NBA, right? This person, it's
Scott Benner 44:08
so awkward, yeah, a six seven guy shouldn't be playing third base. I don't give it how well he hits. You know, you know, they talk about the smell test, you know what I mean, like, or the eye tests. It depends on how you think of it. But like, sometimes they don't pass the eye test. Yeah, and I think that's kind of important too, yes. So anyway, I'd rather have a guy that can play with defense and maybe hits 30 points lower, a fully rounded player. Yeah, I think it makes the game more interesting. Yeah, it takes the roboticness out of it too, because nobody plays with just the freedom that comes with letting your body do what it knows how to do. I almost feel like I can see them all going through the steps in their head while they're doing something anyway.
Adam 44:47
What I mean by that? Course, I shouldn't be a runner because I'm short and I got these little stubby legs.
Scott Benner 44:52
Adam, this is for fun. I don't I'm not paying to watch you on television, so it's okay. That's fair. I don't care what you do. You understand? I.
Adam 45:00
Yeah, you're right. I'm not. I'm also not getting paid, believe it or not, millions of dollars to run.
Scott Benner 45:04
No one's paying you to go for a run. Your wife doesn't even give you 20 to get out of the house. It's
Adam 45:09
the other way around. Actually, I'm paying them to let me do it. So, yeah, it's,
Scott Benner 45:14
it's the other way around before we keep going. Can I pick your brain on a topic that's out and you know the dude at the pirates game, who jumped up the cheer but ended up jumping out of the stands. Yeah. Is he okay? Like, is that local news?
Adam 45:28
I think he's awake and walking.
Scott Benner 45:31
Oh, my God, if you didn't see that, he's in the outfield, maybe, like, right center field, maybe. And it's on the Clemente wall, 21 feet 21 feet tall, 21 feet off the ground. He leaps up with his hands on the railing to celebrate. He looks like he's just jumping up to celebrate. But instead of jumping straight up, he jumps forward a little bit, and then his body kind of intersects the bar, and he loses his balance and just flips right over onto the field. It's horrifying,
Adam 46:01
yeah, it's bad. It's a miracle you survived that. Oh my god.
Scott Benner 46:04
Like, no kidding, yeah, just horrifying. Like, really, I blame Pittsburgh, but I just, you know, I had to spend some time in Pittsburgh this last year. I
Adam 46:15
didn't mind it. I mean, I love Pittsburgh. I've lived here for 20 Oh, God, 24 years and I grew up in Philadelphia. I grew up in the suburbs, did you and no, sorry, Scott, I didn't look back, though.
Scott Benner 46:31
Wait, you grew up where I grew up. Yeah, what got you to Pittsburgh, college? Okay, oh, you went to Pitt. I went to Pitt. I'm a pit guy through for a semester, just long, huh? Yeah, she came right home. But it had nothing to do with Pitt. Actually, okay. She liked the place. She liked everything about it, just that, after switching colleges, she was so far behind in age with everybody else, because she went from kind of a technical college to college that she's like, I'm going to class. People are sometimes, like, almost two years younger than me, a year and a half younger than me. I'm not making friends, and then I'm going back to this tiny little room, and I'm trapped in this box by myself. Oh, I'm sorry to hear that. That was her experience. Yeah, she was going out and trying to do things and everything. It wasn't the place she did. Tend to hate the cold as it got colder, but she's like, I think I just want to come home so she's she's commuting from home now and doing really
Adam 47:22
well. Okay, yeah, I love Pittsburgh. It's a great city. I did
Scott Benner 47:26
not dislike it at all. There's that little park in the middle, and there was a restaurant with, like, glass around it that looked into the park. I had a nice little pizza in there one time. That was nice. I know exactly where you are, okay, all right, yeah, that was good. I know that exact restaurant and the exact Park, yeah, well, we went into the city. I would have seen a pirates game eventually, had she stayed a little longer. Well, it's never too late. It's only a few hours. I know how to get there. Don't worry. I got really lucky on the way home from Pittsburgh one night. So for people who have been listening for a while, like Arden having some needle phobia, that we were having trouble getting, you know, getting worked out, and it's getting better. We're trying something right now that I want to say in case it doesn't work, but if it works, I'll share it with you guys. I was getting up every Sunday morning and driving to Pittsburgh to give Arden a GLP shot and then drive home again. Wow. So I was doing, like, it was, like, an 1112, hour day on Sunday, slow, yeah. So I did that for a few weeks in a row, and one night, I was coming home, was behind this tractor trailer, and it was, you know, it was pretty slow. And I just thought, like, I'm gonna go around the tractor trailer. There were three lanes. I don't remember where I was at this point on the highway. I think after the tunnels coming back this way. Truck trailers in the right. There's car on the left. I'm in the right behind the tractor trailer. I'm gonna go around it on the right. I don't know if you're not supposed to pass on the right or something. I don't know exactly what the law is. I don't pay a lot of attention. But I get over I speed up. I'm overtaking the tractor trailer as I'm overtaking it. I realize my lane is ending because of construction, so my lane is being pinched off very quickly. I look in my rear view mirror to drop back. I cannot drop back. Everything's pinched in behind me at this point. I've got to accelerate and overtake the tractor trailer, and I do that, but I have to really accelerate to make that happen. So as I'm probably cresting 90 miles an hour, and I get in front of the tractor trailer, I stay on it for another second because I don't want to cut the guy off and just jump on my brake right like so I want to clear him so I'm not a problem for him. And as I'm clearing him, there is just a cop, a state trooper, on the right side, beautiful. It's a construction zone. I'm probably going over 90 miles an hour. I accelerated through when I saw that, it was because I didn't want to, like, I didn't want to mess the truck up. Like, at that point, I was like, Oh, I'm getting pulled over. I'm not going to also cut off this tractor trailer, right? Anyway, I know, however, it's, I hope I'm doing a good job. I was not being
Adam 49:53
unsafe. For anyone who's ever driven the Turnpike, they can visualize exactly what you're describing. Also,
Scott Benner 49:58
90 miles an hour is like a walk. In the park on the turnpike. That's right, yeah, that's right. I just start looking for a place to pull over, because I'm like, there's definitely going to be lights on behind me in a second, right? So I find a place I pull over. Trooper comes in behind me, and I look at him, and I go, Listen, I'm going to tell you what happened. You can do whatever you want, but I'm not going to lie to you. And so I told him that story, and he goes, You just trying to get home. And I said, Man, I've been driving from where I live to Pittsburgh to give my daughter an injection that she's having trouble giving herself. And then back again. And he goes, say it again. So I told I explained it to him, and he goes, I gotta write you something, but don't worry about it. And I was like, okay, and he came back and gave me some like, ticket that didn't have any points or it wasn't even a moving violation. I was like, Man, I really appreciate it. And he's like, ah, Get home safe. And that was it. He was
Adam 50:50
probably so confused by what you were doing. Like, you need to repeat that exact statement back to me, because it didn't make any sense. I think when
Scott Benner 50:57
I repeated it back to him, he was like, I've never spent 12 hours in total on my children. So, like, that was very nice to you. I was, and it was during the Eagles Super Bowl run. So I was, like, watching games later instead of watching them live, which was a big deal. I know that seems no, I get it. Yeah, I was really upset by that part. Yeah. And I'd act like I wasn't, like, Arden's like, Are you sure I'm like, how it's no problem at all. Yeah, it's not a big deal. They're just gonna win the Super Bowl this year. They look
Adam 51:24
amazing. Drive 12 hours and then spend enough the rest of the night up watching the game from earlier today.
Scott Benner 51:29
And it was sometimes like, I'd get there, we'd go through the rigmarole of giving her the shot, we'd have lunch, and I'd leave. Yeah, that's brutal, man. It was, it was something. So, yeah, that's brutal. Anyway. That is not why she came home, but I was happy when she came home for that reason, absolutely so. Anyway, my point is, I do know how to get to Pittsburgh if I have to get there. So what are we not covering? Anything that you want to talk about that we haven't,
Adam 51:56
you know? I we talked about gaps, right? And I think I talked a little bit about, you know, the gap of how to on exercise, I think there's, and you touch on this all the time, right? But there's gaps for new diagnosis and resources for new diagnosis. You know, the process of being diagnosed as a really traumatic experience, and people who haven't gone through trauma in their lives, aren't prepared for what's about to happen. And you can see people that you meet who are new diagnoses, that they're walking around like zombies, in some respect, because they don't even it's so overwhelming, right? And they don't even know how to start, and I feel like there should be better resources available to the people who are diagnosed, to re, you know, almost like to have like an advocate, right? Like to have somebody in the practice that's not like a diabetes educator, right? Like some other diabetic, they can be like, You know what Adam is going to be, your big brother, right? Or Arden is going to be your big sister, right? And they're going to help you navigate some of the intricacies of this. Okay? And, you know, it's just, it's fascinating to me that there's not a better network or new diagnosis, and I get it like, there's HIPAA stuff, and like, I've, I get all that, but at the end of the day, there's so many different organizations that are stood up on this non profits, your group, your organization, whatever you want to call it, at this point, like, I feel like that's a gap, yeah, is getting resources to people who are newly diagnosed, and having somebody there to help,
Scott Benner 53:40
probably this might lead me to a tiny bit of a tangent, but this is gonna put me on a timetable if I tell you this so but I'm willing to do it now. I agree with you so much so that I've been, I mean, for years now, trying to figure out a way, like when I came to the realization that most of the answers to your questions are in the conversations in the podcast. But how do you get them to people like and you see it right now. You know, on Facebook, like people ask questions, and they are often answered by group experts who are like, you should try this episode of the podcast, but that's still a very you know, like some of those group experts have their favorite episodes or they don't remember that this is brought up in three other episodes, or maybe spoken about differently one place than the other, but there's still. It's a wonderful thing they're doing, and it's trying to help people. But I keep thinking to myself, like, listen, we can't ask everybody to listen straight through to a podcast with 1000 episodes. Do I think that would help them? I do. Did I interview a 29 year old guy yesterday who will be on a, I don't know if it's going to be an after dark, but diabetes as a kid completely ignores it. Ends up in prison for a while. You know, the only thing that really gets him on the straight and narrow is like, is being in prison, gets out, finds the podcast. You know, a 1c, low sixes. I said, How did you. What he goes, I'm just listening straight through. I'm just learning as I go, right? And I'm like, okay, like, this is proof of concept for me 1000 times over. Like, I don't know how many times somebody has to say something to this to me before I believe them, right? I believe them. This the podcast helps them, but everybody's not going to listen to it. What else do I do? I spent some money that I didn't, kind of have, and I opened up a group on circle. So circles like a platform that you might think of as like Facebook esque, but it's it's much better than Facebook, right? It's a great place to put a private group where people can hang out, but it's expensive, and the way most people pay for those groups is to charge people money to be in the group. I very much don't want to do that, if I if I can help it, and if it has to be like, I want it to be like a very, you know what I mean, like $10 a year or something simple to cover the cost of it. And I had to spend $5,000 just to make sure it was a thing that, you know, would actually work. And you know, could do what I expected it to do. I didn't have that money. I spent that money, and I've been setting it up in the background, and they just came up with the next piece that I knew was where I needed this to go, right? So now, in everybody's group, if you pay for it, there's basically an AI agent in there that is trained only on the information you give it. So I have been in my spare time feeding it the podcast got it, yep. And now you can go to a to a prompt and ask it some pretty complex questions and get back some very clear but thorough answers. That's cool, yeah. And so because that thing that you're saying should exist, you're not the first person to think that. And somebody thought that five years ago and 10 years ago and 20 years ago, and still, what exists is what exists, right? Like, no matter what you do, the human component lets you down at some point, like, somebody comes out, got a shot out of a cannon. Like, I want to help. I'm going to get on the phone with people and be a big brother and blah, blah, blah, and you do that five or six times you go, ain't got time for that. Yep, life gets in the way. Exactly right. So we need something that isn't going to get tired of answering simple questions that people have now, what's the rest of this? Is like, I've got to be able to say to people like, this is not medical advice. This is the component of why you don't see people doing stuff like this. Yeah, yeah. Nobody wants to put themselves
Adam 57:27
out. Yeah. I get it. Yeah. I totally get that. I do
Scott Benner 57:31
too, by the way, but I believe in the gap that you're talking about. And I know, and I think the other
Adam 57:36
thing Scott is it's not just that the gap exists, it's that not everybody consumes information the same way, right? And so not everybody can consume information and understand it in audio. Yeah, right. They need to read
Scott Benner 57:51
it. I believe that some people are readers, some people are listeners, some people are visual. I think I just said it on the podcast, like in an episode you'll hear this week, but I employed a girl to in sign language, do the entire bowl beginning series on video. And I said, if you hear me say it at some point like I'm not doing it, just so that, you know, deaf and hard of hearing people have it, I'm doing it because it'll have a visual aspect to it. So maybe the people who could listen, but need something to look at while they're doing it. Like, I'm like, maybe that would get them to look Sure.
Adam 58:27
I mean, and I think, like, there's so many times I've listened to the podcast, obviously, like in my car right driving home or driving to work, and I'm like, Wait, what did they just say? What was that? What were those numbers like? Going to try to write that down right now I'm going 70 miles an hour. It's just like those, like earmarking a page somewhere, like having a resource like that to go back to to get that information. I think that's like, critical.
Scott Benner 58:50
Well, what I'm saying is is like, imagine if you could go into a private group and you could talk to people if you wanted to. You could start a post up and say, Hey, I was listening to this and this happened. Or you could just go to like, that chat bot and say, you know, in this episode, I think I heard something about this, like, can you find it for me? Yeah, I got it. Yeah, that's a really That's powerful. It's going to be awesome. And that's really cool. And I can't say who, because they're not doing it for this reason, but one of the companies I do business with gave me the $5,000 to cover it. That's awesome. I wish I could tell you who they were, because it's not even, like, it's not a branding thing, like, they're not, they're not going to get anything out of it. They're just supporting a thing I'm trying to do
Adam 59:30
that's great. Yeah, I think that's wonderful, because that's the, that's the spirit of it, right? Is it's, I think it's trying, I mean, and you've been doing this with all that in mind, right? It's it's to be in service of others. It's to help others that are in need.
Scott Benner 59:44
I just really think it, it's the only thing that makes sense, if it ends up costing something for people like, you know, if I can't talk the money out of somebody again next year, or something like that, and it has to keep going. Or, you know, the truth is, if the podcast comes to an end at some point. But this thing is still very, very. Valuable. I might have to charge a little bit of money off off of it, just so I can, like, afford the time to spend on it, you know. But for now, you know, I make enough off the podcast that, like, making this website too is not, it's not a drain on me, and I'm paying my bills, and my wife doesn't think I'm a, you know, a lay about. I'll figure it out as I go. Like, I can't promise you that if you're listening to this five years from now, years from now, the thing doesn't cost 20 bucks a year or something like that.
Adam 1:00:25
But at that, I mean, that's a reasonable barrier to entry, though, right?
Scott Benner 1:00:29
What you see in a lot of these private spaces is they're charging people 1000s of dollars a year to use stuff like this. And I just, I'm not down with that at all. Like, I can't, yeah, that's
Adam 1:00:39
like, buying a book, right? Like, that's effectively, like, I'm gonna buy one book on diabetes a year. It's the same type of thing,
Scott Benner 1:00:44
right? It's not the worst thing in the world that's gonna happen to you. Like, and listen you, I could easily make the argument like that, $500 a year wouldn't be tough, but I do think it's prohibitive. Then I wouldn't want it to be prohibitive to people, just the same as the podcast. I've kept the podcast free for people because and I take ads so I can keep the podcast free, and I've done that so that everybody has an act has access to it. And, you know, I don't want somebody walking around not understanding something as simple as pre bolusing because they couldn't come up with $5 a month to listen to a podcast. It just the money's, yeah, I don't want to be in that situation. Now, listen, will I, you know, get to the end of my life and think, oh, would have been cool if 7080, 90,000 people would have sent over $10 a month. Sure, that probably will get into my head at some point. But like, for right now, I'm very focused on doing the right thing, so, yeah,
Adam 1:01:35
I mean, and that's not why you started it right, and it's organically grown into something different than what you started it
Scott Benner 1:01:41
for. Yeah, I just don't have the feeling about it like that. I got this text the other day from someone, and I'm finding it right now for you. So this person is online, I'm not gonna say where, and they follow an account, I'm not gonna say on what platform, and they think they're just following a diabetes account, and as soon as they follow the account, they get a DM, oh, hey, do you have a kid with type one? And the person responds back and says, I do. And it starts with like, Oh, my heart goes out to you. You know, happy to have you here. Thank you. How old when they were diagnosed? And this person opens up and tells a little bit of their story about their kid, tells them how well they're doing and everything. Actually, the person says, like, we found the Juicebox podcast. We're doing great. I want to give them credit, etc. Oh, that's great. Congratulations. It's amazing what can be done. You can move past just the staying alive part and get to the thing, and then the person's like, oh, you should check out the podcast. And then there's no direct answer to that question. Sounds like you're doing well, but if you ever need more support or someone that does you send them my way, yeah. Oh, what do you offer? And then a link. Here's some video of an explanation of our programs. Now here you go. The person says, How much does it cost? Did you get a chance to watch the video? I did, but I didn't hear anything about the cost. Oh, we have a few different payment options, but you know, we can go over that during a free call. If you're interested, I'm not personally interested. I totally understand that your calls built around you know what it is, and that you have to make money everything. Just want to know what it costs. Thanks for your consideration. I want to be as helpful as possible and agree on transparency. The call is free, yeah, but what does it cost after that? No answer. Will not answer them. That's pretty hard sales like you're going to get on that call, that person's going to say something to you that is going to if you're lost. Go make you think, Oh, my God, I don't need to be lost anymore. And then it's not going to matter how much they tell you next you're going to pay them. And they know that and that, I think that sucks, so it's awful, yeah, but
Adam 1:03:57
unfortunately, I'm not surprised that that's in existence, and that people are doing it that
Scott Benner 1:04:03
way. There's so many accounts at this point, and some of them have podcasts. They're not really even podcasts. They're just fishing. They're like, here, it's just a little tickle your with a feather. You know what I mean? You're like, oh, that does sound boring. What's next? Oh, I gotta, I gotta, I gotta, click on this link. They'll tell me the rest here. Yeah, they'll tell you the rest after you give me your credit card. And again, like people got to make money. I'm not. It's fine. Like I'm not judging you. I'm telling you I'm not okay with doing it that way, like I'm just, I'm just not, yeah, you being healthy shouldn't cost you 1000 or 2000 or 3000 Now, listen, if you have that money and you want to do that, I don't care. But most people don't have that money, but they do have the dire feeling.
Adam 1:04:43
And I think you see similar situations with, like, some of the camps that get put around right, where there's really expensive camps to send your kids to, oh my god no, right? And it's like you're just gonna throw that money, like you're just gonna do that, or you're gonna go find one that's
Scott Benner 1:04:59
free. Me Listen, I gave a lot of Camp away this year. Yeah, I saw you. I saw that camp Sweeney gave me a lot of, like, free spots to give away. And there's no doubt, like, it helps them, like, you know, draws attention to the camp, obviously, but my God, I think it's like $4,000 or something like that. Yeah, that's crazy. Yeah, it's like, three weeks. Like, don't get me wrong, it's not, like, it's not, it's not over a weekend or something like that. But still, again, if you have $3,000 to send your kid to camp with, then that's awesome. But like, if you don't, then, I mean, at least that's just camp. I'm talking about being healthy.
Adam 1:05:32
I mean, that feels like the athlete analogy, right? It's like, oh, you have that at your disposal, therefore you'll get better care, right? Versus the average person who has this disease
Scott Benner 1:05:43
anyway, so I'm doing my best I can with the information I have to not put a wall around it that people can't get over. Yeah, I think that's huge. Yeah, I appreciate it, and at the same time like it's just not free, I don't want him to hear this and feel bad, because he's a great guy, and it's a very fair price, and nobody is ripping me off having the podcast edited just so it sounds good.
Adam 1:06:06
It costs more than you think. Oh, yeah, that's someone's time.
Scott Benner 1:06:09
Yeah, that's his business, and he deserves it, like, I'm not saying otherwise, like he and he does an awesome job. Like, and I was listening to the podcast today in my car, and I was like, God damn, this sounds like I switched from a podcast that's probably one of the top 50 podcasts in the world. To mine in my car, mine sounds better. The audio is better. It's clear the edits are better. Rob does an awesome job. That's not my point. My point is, is that someone pays Rob and that someone is me. Yeah, right. And the thing the platform that's me. And you know, at 1130 at night, when you're a little drunky, drunk on Facebook, and you're calling somebody a name, and that gets taken off because it's mean, that's me too, yeah, right. Like, you know, I'm out there, like, swinging with both hands, and then I see somebody out there, like, sending this message to somebody just, like, just get on the call with me, because I'll sell the out of you and take your money. You know what I mean. Like,
Adam 1:07:02
do you think, as you're talking through all this has got me thinking, Do you think that as Arden gets older and eventually doesn't require, like, I don't know how engaged you are in supporting her now, but like, eventually it'll be zero. Do you see you backing away from this? Do you think that that'll be a natural progression.
Scott Benner 1:07:22
I have to tell you that I don't know how life is going to go, but it's always been my kind of expectation that the podcast will drift to an end after she has a baby, yeah, because that'll be maybe the last thing.
Adam 1:07:35
Well, maybe unless her kids get type one, and then it's all, it's just reasonable,
Scott Benner 1:07:40
grandpa, I'll be making a pop when people are like, what's a podcast? And
Adam 1:07:44
you'll be talking about circle, and you'll be like, Oh, wait, he's so old, he still uses circle. They all get
Scott Benner 1:07:51
together on circle. Isn't that delightful?
Adam 1:07:53
Yeah, right. He probably uses Facebook too. Yeah,
Scott Benner 1:07:58
exactly. I mean, in my mind, like I've kind of thought, like, if Arden has a baby, that's my last because she has said to me privately, like, sometimes she'll be like, Hey, leave me alone. I know what I'm doing. Blah, blah, blah. And I'm like, right? And she'll go unless I get pregnant, I'm gonna want a lot of help then. And I was like, oh, okay, yeah. I mean, I think I've transcended the dad with a kid with diabetes moniker at this point. If I haven't, I'm overestimating myself, maybe. But, like, I've made the podcast big enough now, where people come on here to talk about diabetes stuff, it's more of a hub. So, I mean, I can still bring in doctors and people doing research and stuff like that, and I think this part of it letting people come on and have conversations that are actually entertaining, so that you can hear about diabetes without being bored to death. Yeah, I think I'm good at that, you know. And as long as you guys keep coming on here and telling me crazy stories, I think that'll all work out. I don't know. I mean, I've privately said I feel like I could do it for 10 more years, but that would put me in my early 60s. So Well, then there you go, yeah, and then I'll leave behind the stuff online for you guys to use.
Adam 1:09:04
It's impressive. You've kept it up with this type of cadence for this long
Scott Benner 1:09:08
Well, it is my job. So, like, you know, yeah,
Adam 1:09:11
it is. But still, you, I mean, people get burned out of their jobs, right? I mean, that happens. So it does. Yeah, I don't know, as you're talking through it, I'm just wondering, like, is Arden like the push right? And as she needs less and less support, does it just eventually fizzle? And I think, yeah, you're, you're seeing that a little
Scott Benner 1:09:31
bit it might. And at the same time, I'd say that the process of making the podcast gives me insight into people living with diabetes that not a lot of people have, because they're not constantly talking to people with diabetes and making a podcast and trying to figure out a way to make it entertaining. I think I can figure out how to meet people where they are with information that they need. Yeah, and the truth is, is that my listener base is so. Big that, if I say, let's try to go on circle, I might actually get it launched. You know what I mean? Like, if I say, like, you know, here's some articles about stuff that'll help. Like, I think I can get it out to people,
Adam 1:10:14
yeah, absolutely. That's like, Patreon, right? Like, it's basically like, Hey, I'm gonna go pay for some a little more content, right?
Scott Benner 1:10:21
Not even that. I don't think people have to pay for it. What I'm saying is, is that you can make whatever you like. You know, the ADA has great information. I'm sure you know what I mean, like, but people follow the ADA because they get diabetes. They go, Oh, follow the American Diabetes Association. But if you go, look at people's Facebook pages and groups, for example, like, even, like, big pumps or CGM or organizations, like, yeah, they have a lot of people following them, but look at their engagement. There's no engagement whatsoever, right? And that's because they're not saying anything, because they can't. So companies can't say anything, because the FDA, you know, gags them six ways from Sunday. So they can't, they can't say one thing or the other about they can't even tell you how to use their product. They can tell you, like, here are the instructions. Or ask your doctor. But if you jumped on and said, Hey, I have a question about setting up an extended Bolus, they'd be like, You should talk to your doctor, because we're
Adam 1:11:15
not allowed to say that. That's right, because we're not doctors. We just make the device
Scott Benner 1:11:18
so their content sucks because of that. That's why you see, like, Oh, here's people wearing our pump, or here's people wearing our CGM, or, like, you know, like, here's people holding our insulin pen, like, because they can't actually do community, and so I can, like, I
Adam 1:11:35
that's it, right? That's the gap, right? Is the commute. Is community, right? It's, it's a true community of people that want to help each other,
Scott Benner 1:11:44
right? But to your point, the reason like, why is my my Facebook group today has 65,000 people in it today, and five weeks ago, it had 60,000 people in it. Wow. So 10% Yeah, it went up that quickly in the last six like five, six weeks, 125 new posts a day, 8000 likes, comments and like reactions a day. There's no downtime in the group. Let me see if I can find it for you. It's kind of stunning. I
Adam 1:12:18
think in general, that can be a little overwhelming to the average person as well, for what
Scott Benner 1:12:23
it's worth. Can but they don't see it all because Facebook doesn't feed it all to them. Yeah, there's that too, so they don't. It's not like they're seeing 125 posts a day. Yeah, I get to see them, and it's a lot. But like, for example, the slowest you could get on my Facebook group would be that there are 75 active members on it, and that's at 2am Eastern Time. And in the last week, at 11am there were 332 active people. And there are usually between two and 400 active people in there every hour. Wow. So you're never going to be alone. Somebody's going to see I've even noticed, you know, posts that put up that get quick answers, like the person satisfied, and then the algorithm kind of stops feeding it after that point, but it still did what it was supposed to do. Somebody asked a question, they got an answer, and I think that's fantastic. Then there's ones that are, you know, their engagement is much larger. They're like, I'm looking at my top engaging post here from the last month. It was literally engaged by 11,000
Adam 1:13:28
members, you know. So I think something that's worth touching on a little bit is that in order to put a post up on Facebook, even though you can be anonymous, I think it still takes a certain amount of vulnerability, yeah, to go up and ask for help, ballsy, you know. And I think that's the other thing that I feel pretty strongly about, is finding a way to make people comfortable in being able to ask questions that they may come off like, these are gonna be dumb questions, but like, everybody starts from zero on this, you know? And I think that's where that human element for me comes in, though too, right is, and that's why my head went to like, local advocates, local organizations, yeah, human interaction with other humans that can truly, like, reach out and physically help guide you. How do you bridge that gap, right? How do you make people look comfortable going and asking those questions if that's what the resource availability is going to be? Yeah. So
Scott Benner 1:14:25
I think the answer is, is that They lurk and they get their answers by lurking, or I put in a prompt where they can ping it, because, yeah, it doesn't need to be 65,000 people. If my circle group gets up to 5000 people and they're talking to each other in there, that chat bot won't just have access to what I feed it, which is the transcripts to the podcast. It'll also have access to the conversations people are having, so you can ask a question and it'll literally give you a link. Like, trust me, if Facebook would just have done this, I wouldn't have had to go somewhere else, but they're never gonna do something like this. Yeah. Because this actually helps people, and it might get them out of Facebook. You know what I mean? Imagine you can ask a question, be taken right to a conversation that's already happened, and you can watch it like right in front of you go, Okay, this is it. And then it can say to you also, this episode. In this episode of the podcast, click on that link. It opens up the the episode. There's a player right there. You can listen to, yeah, that'd be spectacular. That's how it's gonna go, yeah. But so there's this thing called the they call it two different things. It's called the 99 one rule. So it's 90 dash nine dash one rule. Or some people call it the participation in equity inequality. It's about online. What it means is that 90% of users are lurkers. 9% of people contribute occasionally, maybe by liking or commenting on a post. But only 1% are highly active, like creators, making posts or replying. So what it means is, is that out of every 100 people, only one person has it in them to make a post, to reply to a poster, to engage with somebody consistently, yeah, and that's pretty consistent, because the first time I heard about this was back when I was blogging, and a company came to me and they were excited about how much activity I had on my blog. And I was like, I like, I don't understand, like, I know how many, like, 10s of 1000s of people wrote, read that thing I wrote, and there's, there's eight comments on it, and they'd be like, No, that's a lot. And I'm like, and I kept thinking like, No, it's not, but it is because of the 99 one rule, which says that only 1% of us have it in us to like publicly talk like that. So what's different? I think it's just numbers. Now, it's still just one, probably, but it's one of 65,000 instead of one of, you know, 10,000 or 20,000 people reading. And I do think that the community is overwhelmingly so comfortable and friendly that it does open people up to speaking, and it allows you to make anonymous posts, which I think is funny, because when that came up, I had the I'm allowed to shut off anonymous posting if I want to, and I'll tell you that it would make moderation much easier, but I think it's a value for people, so I leave it on. Not everybody's gonna be comfortable putting their name out there. Yeah, I agree. So anyway, you're very kind to say all that stuff. I am trying my hardest to make stuff that's valuable for people, and I'm trying to stay ahead of the curve. I think I'm way ahead on the AI thing. Honestly, Arden had to go to the emergency room this week to get IV antibiotics, right? So it's not she's fine, but like she she gets tonsillitis a lot, which is the thing maybe won't happen to her anymore because she's thinking about having her tonsils taken out. Gets really bad. She gets an antibiotic. Couple three days go by. Nothing gets cleared up, goes back to the doctor. Doctors like, let's switch you to a different antibiotics, which is another one, another three days goes by. Four days, she's no better. Doctors like, hey, you know it was Sunday night at that point, the doctor's like, I think you just need to go to the emergency room. Like, Arden tonsils were overlapping, like, in the back, like, like, blocking her air. Like, it was pretty bad, right? So in the 45 minutes that it took me to get the doctor on the phone, speak with the doctor, make a decision, go to the ER with Arden on Sunday night, I went to chat GPT and talked the whole thing through with it, and I am not telling you a lie, everything that was said to us from the moment we got to the hospital, to the moment we left the hospital, chatgpt told me was going to happen. It was 100% right, meaning that if I knew how to start the IV and had access to what they gave me, I did not need any of the people that I spoke to. So I'm not telling you that like I went in there and found the answer and then told them what the answer was. I asked that thing what was going to happen, and it's exactly what happened. And then I went back later and looked even the way it explained things was, I'm telling you, almost word for word, the words that the doctor used to explain what was happening. And I realized that doctor is just going to it's a pool of information that they have. That's right? It's clinical. That's it. It's clinical. Yeah, it's a clinic. It's textbook, right? I mean, that's a it's going to work really well for medicine, is what I'm saying. Yeah, absolutely, yeah, yeah. You're, you're, there's static answers to static questions. And the truth is, is that you have a better chance of the AI being able to access all of it and spit it back out to you than you are for the doctor to remember it. So, like, you know, sure this was tonsillitis, so she spit it back out perfectly, because she probably goes through it 50 times a week. But what happens when it's something like, Why does my blood sugar go up when I eat fat and protein? And it's not a thing they always talk about. Like, then they go, I don't know. Maybe your settings are off,
Adam 1:19:37
you know? Yeah. I mean, I also think that there's some nuance to some of that that, quite frankly, doctors who aren't living as type ones aren't going to even be able to respond to
Scott Benner 1:19:48
Yep, but that nuance exists in the conversations between Jenny and I,
Adam 1:19:52
yeah, exactly right, and that's why the community, it's almost like the doctors are there, I don't know, to get you the tools to be able to. Solve the problem, but then you need the community to help you fine tune the knobs and the dials
Scott Benner 1:20:04
on them. Yeah? And then the unspoken part, Adam, that we don't talk about, that I know because I speak to doctors behind the scenes and they don't, all you know, say this out loud is that not everybody has the same ability to work through those problems, and the ones who don't get left by the wayside as patients? Yeah, right. Not everybody's thinking on the same level, no, and
Adam 1:20:24
that's something I am extraordinarily grateful for, is that I have the ability to study it and understand it and feel comfortable in
Scott Benner 1:20:34
making decisions. You got to point an engineer's brain at diabetes. Yeah? My
Adam 1:20:39
endo is like, you're hate, can I hate this Adam, but you're the perfect diabetic patient. Like, you're the perfect person to get diabetes. Great,
Scott Benner 1:20:47
awesome, yeah, because the way your brain works lends itself to this process.
Adam 1:20:51
Yeah, and not, it's not just that, it's that I also have good insurance and I can get, yeah, good medical care. Like, I can afford extra sensors when I want to buy one, like, I can do that. Like, not everybody has that at their disposal. Yeah,
Scott Benner 1:21:05
yeah, no, yeah. You just so casual. You were, like, I wear two and I'm running. And there's some people are running around, like, I'm gonna run out of these things. Like, it's a major, you know, that's right, yeah, not everybody's got the same situation. I gotta
Adam 1:21:15
skip a couple days because I won't get like, those are the things that I think we can take for granted is that not everybody has that at at the disposal?
Scott Benner 1:21:25
Sure. No, it's easy to forget. If you have it, that's for sure. Yeah, yeah, you take it for granted. Well, even the thing I'm doing, as much as I think it's going to be valuable for people like you got to be online. You have time. You have to still, it's, there's still barriers to entry. Like, you know what I mean? Like, not that I'll put up the barrier, but you might have some barriers of your own that stop you from getting to it. Yeah. So we'll say, in the end, if people just have good ideas and try them, like, I think that's that's a great thing. That's all I'm doing. If it works, it works, and if it doesn't, I mean, I'm out some money and it didn't work, but I think it's a solid ideas. Tried, yeah, yeah, exactly. And I'm not a person, like, you don't know me, know me, but, like, I have a lot of ideas. I don't move forward with most of them. I really need to see a path to success before I put something into motion. I know that there's that they used to call it the millionaires idea of like, right? Like a millionaire, but goes bankrupt four times or something before they make money, or something like that, like, I'm not that guy, like, I'm not moving till I see the end. So when I do, I normally have some success, because it's been thought through, like, you know, six ways from Sunday. So I think this is gonna work. The last bit is for you guys to actually do it.
Adam 1:22:37
And I think the hardest part on a lot of things, though, is just the first few steps, right? And just getting started.
Scott Benner 1:22:43
It sounds so cliche, but just doing it, really is most of it. Yeah, this needs you to go, you know, download the circle app and, you know, and and actually go on there and make some conversations with people, and get the thing growing so that it works. That's the one thing I can't like. I'm not able to control that, but I can put it out there, and, you know, I can show it to you and show you how it works, and hopefully you'll find value in it. And, yeah, that's my goal, is that if it has value, you'll know, because people will use it, and then I'll know it's worthwhile. So anyway, Adam, you were great. Rob is, uh, right now he's like, stop talking. Been talking. Sure, I know.
Adam 1:23:21
Keep talking to like that's the thing. We didn't even get to half the stuff I thought we would, which is always funny.
Scott Benner 1:23:26
Sorry. I do appreciate you listening and for being on today. Thank you very much. Of course, hold on one second for
me, this episode of The Juicebox podcast is sponsored by Omnipod five. Omnipod five is a tube, free, automated insulin delivery system that's been shown to significantly improve a 1c and time and range for people with type one diabetes when they've switched from daily injections, learn more and get started today at omnipod.com/juicebox of my link, you can get a free starter kit right now. Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox today's episode of The Juicebox podcast is sponsored by the Dexcom g7 and the Dexcom g7 warms up in just 30 minutes. Check it out now at dexcom.com/juicebox, hey, thanks for listening all the way to the end. I really appreciate your loyalty and listenership. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox podcast. The episode you just heard was professionally edited by wrong way recording. Wrong wayrecording.com. You.
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