#741 Bolusing in Bucharest
Sergiu is the father of a young type 1.
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Scott Benner 0:00
Hello friends, and welcome to episode 741 of the Juicebox Podcast.
Sergio was on the show today he is the father of a young child living with type one diabetes. And he's here to share his story with us. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. Let me take this opportunity to ask you to go to T one D exchange.org. Forward slash juice box and fill out the survey. Every completed survey AT T one D exchange.org. Forward slash juice box benefits people living with type one diabetes. It also helps the podcast the T one D exchange is looking for surveys from US residents who have type one diabetes, or who are the caregiver of someone with type one. This is completely HIPAA compliant. Absolutely anonymous will take fewer than 10 minutes and helps everybody including you t one D exchange.org. Forward slash juicebox. It's a great way to be involved in type one research right from your sofa.
This episode of The Juicebox Podcast is sponsored by Ian pen from Medtronic diabetes, please go to in pen today.com. To learn more and get started today with Ian pen. The podcast is also sponsored by touched by type one go to touched by type one.org. To learn more about my favorite diabetes charity. The podcast is also sponsored by us med. US med is the place where we get Ardens diabetes supplies, and you could to go to us med.com forward slash juice box or call 888-721-1514 To get your free benefits check from us med
Sergui 2:16
I in surgery. I am a 33 years old and I am the father of Stefan, who is almost four years old. And he's been he's been a diabetic since the age of two years old.
Scott Benner 2:32
Since he's almost How old is that? fine now?
Sergui 2:36
His birthday is on the second of March. And he was diagnosed in 2018. In November, just a few months before his birthday.
Scott Benner 2:48
So he's coming up on four years with diabetes.
Sergui 2:51
Yes. to two years, two years with diabetes
Scott Benner 2:55
two years. And how old is he?
Sergui 2:58
He's almost four years old. In one month, he will be 404 years old. Gotcha.
Scott Benner 3:04
Wow. Well, that's pretty young to be diagnosed. That's for sure. Yes, you know, I just reached out to a person today to try to get someone on the show whose five month old has diabetes. And that seemed crazy to me. So hopefully she'll be able to come on and talk about it. But where do you live?
Sergui 3:27
We are living in Bucharest, Romania, in Eastern Europe.
Scott Benner 3:32
Is that where you're from originally? Yes.
Sergui 3:35
My parents are from Bucharest and like, I'm also living here.
Scott Benner 3:40
Is there any history of autoimmune in your family?
Sergui 3:46
After Stefan was diagnosed, I research this because also the doctors at the hospital were were asking this if anybody in the family has diabetes, and nobody has diabetes type one but my mother she's she has Hashimotos she has an autoimmune disease with her thyroid
Scott Benner 4:10
associated, your mom has Hashimotos Your son has type one you couldn't find anything else like celiac or
Sergui 4:17
not, that I know of. And I don't think anyone has anything else because they they all lived long lives and
Scott Benner 4:30
it's a must have been a shock. That's for sure. Yes, yeah. So how did you figure out that Stefan had diabetes?
Sergui 4:41
I knew the symptoms of diabetes, but I didn't know what diabetes means. I didn't know that it was such a horrible disease and that you must take care of it your whole life. I knew that if somebody has to go to the bathroom a lot and they're thirsty most of the time they even I must have diabetes. And I went to his doctor and I requested some kind of analysis that could indicate to us if he has diabetes.
Scott Benner 5:15
Do you know what they did to check?
Sergui 5:17
More we made them they they were they weren't so concerned about this and they said we should go to a laboratory and they will take some blood. And we did this and we went home. They went to sleep my my wife and Stefan. And during that night, they they started calling from the blood laboratory, because they found out the result and it was around 600 milligram milligrams per deciliter.
Scott Benner 5:50
They they have you come right to a hospital.
Sergui 5:53
We they told us to call an ambulance and the ambulance picked my son up and they went to the hospital that is specialized, specialized in diabetes. And he was put on IV immediately with glucose and insulin, and he was stabilized in the next few days.
Scott Benner 6:17
Okay. Do you have any other children? No, no. How old? Are you?
Sergui 6:24
33 years old. 33.
Scott Benner 6:25
So you were just in your early? You were just 3031 when he was diagnosed?
Sergui 6:31
Yes, a few days after my birthday.
Scott Benner 6:37
Thank you. That's, that's insane. So how long does he stay in the hospital for?
Sergui 6:47
Usually, one has to stay around one week in order to learn the main principles of diabetes in order in order to learn how to Bolus how to take some big blood from the fingers. But they they stayed around 10 days because they wanted to learn more my wife and my son
Scott Benner 7:12
is that how does the health insurance work for you? Is that Is that something you pay for? From your own money? Do you have insurance? Does the state pay for it? How does it go?
Sergui 7:21
In Romania? Everyone who is employed has universal health health insurance. Okay. You're you pay for from your salary. The taxes are automatically collected and you are insured, I think and people who are not employed such as miners and students, they are also covered by the universal health care system. And this is a very, very good thing.
Scott Benner 7:52
Okay, good. That's wonderful. So who's not covered? people of working age who aren't employed? Where are they?
Sergui 8:00
Yes. Okay. Yes, people who are not employed, but if they pay their taxes, they can be insured. And how about the elderly? They're also insured that's based on because they have a pension and they they're automatically insured. Yes.
Scott Benner 8:17
So how does how do they set you up? For management? Are you using insulin pens, needles, they give you a pump? How do they think about it?
Sergui 8:30
They gave us a tense novel rapid tense and they put us to put us on fast acting insulin and low slow acting insulin. Let me let me run de novo rapid
Scott Benner 8:45
and just a meter to test with.
Sergui 8:47
Yes, the meter you you also use the Contour Next One meter.
Scott Benner 8:53
Wow. Wonderful. I'm glad it's getting around. So how did you find I mean, two years old, he couldn't have weighed much, right?
Sergui 9:04
Yes, I think it was around 13 or 14 kilograms.
Scott Benner 9:09
Gotcha. I'm going to do my little math here. So you come home, no real idea about this. Although they your wife and your son stayed longer to learn more. Who takes on the responsibility? Is it your wife or do you share it?
Sergui 9:35
My My wife was staying with him. At the time she was at home and she continued to stay with him and during the day she she was managing his diabetes and in the evenings and during the weekends I I took on this job.
Scott Benner 9:52
Okay to give her a break.
Sergui 9:54
Yes, yeah. And during my hospital stay, I spoke with a doctor and they told me that we could apply for a pump. After six months. This this was the this is the legal requirement after six months of diabetes, you can apply for a free pump and free sensor from the state. And the only supplier of such things is Medtronic.
Scott Benner 10:23
Right? Did you apply?
Sergui 10:27
No, because I knew that this that pump with a wire would be difficult for him since he was he was only a toddler. I joined a local Facebook group regarding diabetes, and I found out that there were other options. But these were not these were not paid by by our insurance, because they're not officially in our country.
Scott Benner 10:58
I see. So there are Dexcom and Omnipod. But yes, were you able to obtain them.
Sergui 11:06
I managed to obtain first the sensors. Because the doctor told us that we would first buy Medtronic sensors and afterwards they will be paid by the state. But they were very expensive and that the Tronic transmitters were very expensive. And also the sensors and I I also found out that they were not so not so reliable as Dexcom once, so I decided to buy Dexcom G SIX sensors.
Scott Benner 11:38
So are you I mean, how are you on E
Sergui 11:41
we used the blood glucose meter for only two months. And afterwards we we move to switch to the we moved on to the glucose sensors.
Scott Benner 11:53
Is that a burden for you financially?
Sergui 11:59
It is because I know I could I can obtain the Medtronic sensors and but they're not they're not so not so reliable. And I can I can look within and that's another reason i i cannot use them.
Scott Benner 12:19
Okay. Well, I mean, that's fascinating that you were able to find them. Do you mean? Do you get them through the internet? You have to travel to get them? How do you obtain them? I mean, you don't have to be super specific, but I'm just interested in how you're able to do that.
Sergui 12:33
We get them from another country. There are also some local suppliers, but they are more expensive. So it's cheaper to get them from abroad. And even even if we have to pay shipping, it's it's cheaper than buying them in Romania. I understand.
Scott Benner 12:50
Wow. That's something how is how's your son doing?
Sergui 12:57
He's doing fine. Yes, we were looking with Omnipod and Dexcom. And he has a GMI. I don't know what GMI stands for. But that approximation of in the clarity that
Scott Benner 13:20
we have a calling glucose management indicator.
Sergui 13:23
Yeah, he has GMI of 6.2 for the last 90 days. The standard deviation is about 50 milligrams per deciliter. Yeah. He has no eating restrictions.
Scott Benner 13:38
doing terrific. That's really wonderful.
Sergui 13:41
We have spikes because we never know how much he's going to eat. And one day he will eat a lot of one thing and the next day will he'll eat less. So I always Pre-Bolus. But I sometimes get it wrong.
Scott Benner 13:58
Yeah, me too. I sometimes get it wrong, too. I think everyone sometimes gets it wrong. How do you find yourself talking to me?
Sergui 14:11
I found your podcast in 2020. During the COVID pandemic, I started listening to it. But somehow I didn't think it was right for me because your podcast is in general, American oriented. And I couldn't get all of the inside jokes all of the manner of speaking
Scott Benner 14:42
Yeah, my stupidity doesn't translate well. No.
Sergui 14:46
No, but but I didn't have all the tools and all of the knowledge and it I was still in my infancy regarding diabetes and I left it and then a more unsurpassed. And I understood some things by myself and I really approached your podcast and I understood that what you're doing is universally Correct. Regarding
Scott Benner 15:16
diabetes in apply if you're using insulin.
Sergui 15:19
Yeah, it applies to everyone in the world. Wow, that's
Scott Benner 15:23
so I'm, I'm really grateful. How did you But initially, how do you find it? Are you searching on the internet or somebody tells you about it? Yeah,
Sergui 15:30
I was searching on the internet. Things about diabetes tools, I joined the main groups CGM in the cloud looped. I started reading about loop I had, I acquired the pumps in the first trimester of 2020. But we didn't use the pumps because we had to go to a hospital. And it was very difficult during that time, and we said we should wait more in order to see what's happening, because most of the hospitals were, were busy with school with them. We couldn't find the right time to go there.
Scott Benner 16:15
It's hard to want to go to a hospital during during COVID If you don't have COVID. I think that's a that's universal as well, we're actually seeing in America now that people were putting off other health issues. And so a lot of the a lot of the traffic that we're seeing at hospitals right now is for things that people were just waiting on, because they didn't want to go in right away. So I think that's a fairly common decision. How long has your How long is your son been wearing a pump at this point?
Sergui 16:47
I think it's almost one year in 2021. In January, we went to this doctor and they helped us put the few the the first pumps. And afterwards we, we were doing insulin therapy with a pump. And when I was growing impatient because I didn't like to wake up during the night and go to the Biddy and Beau's or stop the basals. So one day I took his phone I installed looked and I told my wife that from now on, we will be using this software, this algorithm,
Scott Benner 17:34
did you have the technical know how was it not much trouble for you to make the loop app and and put it on your phone?
Sergui 17:41
It wasn't that difficult because the documentation is really well well written. And I was able to follow the steps. And I read about the problem that might arise on the group. So it wasn't that difficult. It was difficult. It was difficult to to persuade my wife that this is the right way to go.
Scott Benner 18:03
Because it's something you got off the internet or because or because your three year old a cell phone
Sergui 18:12
he was already using the iPhone because we don't have a CGM receiver, we were using the iPhone as a as a receiver for the Dexcom. But she she she was not very happy because she didn't. She didn't read the documentation she hadn't time hadn't had the time to prepare to, to see what what what loop is and how, how one is supposed to use it. Yeah,
Scott Benner 18:41
it's a leap to do when you first find it, it's a leap for sure to trust something that you're just, I mean, I feel like I always have to put in the episodes in case people don't understand that loop is a do it yourself. algorithm. And it's just it exists online, you can just download it and use it it was written by people who have diabetes or love somebody who has diabetes, it's not it's not produced by a company. And it hasn't been any through at through any testing with the FDA here in America or any other body, you know, around the world. So you're, you're jumping in on faith, but it does work really well. And if you could figure out how to how to create that app and get it on your phone. You know, it's really just, there's nothing like it so far that I've seen I have a lot of hope from the pod five. We just just they just discussed it on the show four days ago as it was cleared by the FDA. But in a loop so loops are a lifesaver for sure. I'm fascinated that all of that stuff makes it to Europe because it's not sold there or is it sold some places but not in Romania. So um the politics is some places in your part of the world.
Sergui 19:54
Yes. Omnipod is present in all of the Western European countries, the developed countries Germany, France, Spain, Italy, the Nordic countries in the UK, but not in, but not in all of Eastern Europe. Okay, that also applies to Dexcom. In the meantime, since I've written the email to you, I've seen that Dexcom has launched a new service in Eastern Europe called Dexcom, Dexcom. One, and they sell Dexcom G SIX sensors at a cheaper price the app is not so it doesn't have all of the options as the main as the normal Dexcom G six app, you don't have followers. But you can look with the sensors, and they have the same precision. So that's all all you need. Would
Scott Benner 20:51
you if you will, but you would like that other functionality. I imagine the followers and no, not
Sergui 20:56
really, I wouldn't be very happy if they all they also launched the service in Romania. Okay. Oh, neighbors in the south, Bulgaria, they, they got this new service, and they are officially supported by Dexcom. They could they can go to the app store and download the Dexcom G six app, or the Dexcom. One app, and they can buy locally, the sensors. This is great.
Scott Benner 21:23
Yeah. I mean, perhaps it's, I've never spoken to them about it. But maybe it's spreading, maybe they're finding a way to move it around the world, which is incredibly needed. You know, just
Sergui 21:34
people because people are already buying in Romania, Dexcom sensors. And if Dexcom were to come, they could also participate in the state public tenders, they could sell to the state sensors, because the state of the we have a National diabetes Program. And the only supplier we have is Medtronic.
Scott Benner 21:57
Yeah, well, Medtronic is a it's a huge company. So they I think I mean, if I'm guessing they can absorb the cost easier of spreading the product out, whereas smaller companies might have a little bit of trouble with that overhead. As you're expanding. I mean, I'm guessing I don't really know. Maybe I'll ask them some time to really talk about the process and, and how they get into new areas. It's a it's really funny, because you really are being in Romania, you're sort of just right in the middle of Eastern Europe, right. You're or you're not landless. But
Sergui 22:32
you're No, no, no, we're we are not landlocked, we have access to the Black Sea. And we are surrounded by countries that seem to have one of these two suppliers, either Dexcom or Omnipod. And I don't understand why they're not coming here, because there is a huge demand for their products. Okay. I'll tell you what I like to use them.
Scott Benner 22:53
The next time I speak to somebody, I'll bring it up, and, and see if I can, I mean, I'm not saying I'm talking right to the top, but I'll put it in somebody's head that they're missing. They're missing a country in the middle of a place where they they're pretty much covered otherwise. So I mean, there's got to be some, you have to imagine if they're everywhere else around you, there's got to be something that's holding them back that is out of their control, you wouldn't imagine that they would just skip one country in the area, you know, after find out so we can figure out this. It's interesting.
Sergui 23:25
I mean, the products are being sold here by third party suppliers by the Dexcom and Omnipod. They are not officially present here. I cannot go to the Romanian app store and download the app, I have to register on a different country in order to download the app. I mean, the products are here, but they're not officially here. And that's the problem.
Scott Benner 23:45
Yeah, no, I understand. Well, you mentioned in your, in your note to me that you have a fair amount of guilt about your son's diagnosis. And I was wondering when you began to notice it and how it's impacted you and if you've had any luck working through it. Today's episode of The Juicebox Podcast is sponsored by in pen from Medtronic diabetes in pen is an insulin pen that offers some of the functionality that you've come to expect from an insulin pump. I know you're thinking, Oh, Scott, please tell me more. Well, I will. Yes, the ink pen is a pen. But it also has an application that lives on your smart device. This app shows you your current glucose levels, meal history, dose history and activity log glucose history, active insulin remaining a dosing calculator and reports that you and your physician can use while you're trying to decide what your next step is. Well, well well. It's not just an insulin pen. Now is in pen today. dot com. That's where you're going to find out more information and get started. If you're ready to try the M pen, just fill out the form at M pen today.com or do some more reading. There's actually some videos you could check out too about the dosing calculator, the dose reminders, card counting support, and the digital logbook. So if you want to lighten your diabetes management load, but you're not ready for an insulin pump in Penn is probably right for you. In Penn today.com in Penn also offers 24 hour Technical Support hands on product training, and online educational resources. And here's something else that you'll find it in Penn today.com. That is actually very exciting. Now this offer is for people with commercial insurance in terms and conditions do apply, but you may pay as little as $35 for the in pen. And that's because Medtronic diabetes does not want cost to be a roadblock to you getting the therapy you need within pen $35 How crazy is that? In pen today.com in pen requires a prescription and settings from your healthcare provider. You must use proper settings and follow the instructions as directed, where you can experience high or low glucose levels. For more safety information where to get started today, you can go to in Penn today.com Have you found that getting your diabetes supplies can be a pain in the butt. I have to but not any longer because now we're getting Ardens diabetes supplies from us med to get a free benefits check, just call 888-721-1514 or go to us med.com forward slash juicebox. US med has served over 1 million diabetes customers since 1996. And they want you to know that they're offering you better service and better care than you're getting now. US med always provides 90 days worth of supplies, and fast and free shipping. They carry everything from insulin pumps and diabetes testing supplies to the latest CGM like the FreeStyle Libre two and the Dexcom G six. Arden gets her Dex comps and her on the pods from us med. US med accepts Medicare nationwide and over 800 private insurers. US med is the number one distributor for FreeStyle Libre systems. The number one specialty distributor for Omni pod dash, number one fastest growing tandem distributor, the number one rated distributor in Dexcom, customer service satisfaction surveys. And they are proud of the white glove treatment that they offer their customers, US med.com forward slash juice box or call 888-721-1514. And that 888 Number is special just for Juicebox Podcast listeners. Now if you decide to go to the website, it's super simple. Here's what it tells you when you get there. Getting started is easy. from the comfort of your own home or office, you can now join over 1 million satisfied customers who rely on our staff of courteous knowledgeable and trained us med customer care representatives to keep you up to date with your medical and diabetic supplies delivered right to your door. Super simple benefits check name, phone number, email, zip code, and then just hit the button that says Request a free benefits check. It's that easy. Let us med take care of your supplies. So you don't have to worry.
Sergui 28:40
I have no no I haven't thought about that in a long while but my wife she she blames herself. And also she blames me because she thinks that we could have done something some things differently in order for this not to happen.
Scott Benner 29:04
What do you mean? Like not take the baby somewhere or? I don't know what like what do you think could have? I mean, what does she think could have been done? Or has she not shared it with you?
Sergui 29:18
The first two years of parenthood were were were a difficult time for us because we're young parents and we feel that we could have done some things different we could have been there more for him. We could have gone in more vacations or want to know this
Scott Benner 29:50
is this is it kind of is it sort of just this nebulous feeling that there was something you could have done, but you'd Don't really know what it is. And you just feel badly for not knowing what that thing is.
Sergui 30:06
I don't think it's that nebulous, because we also had some discussions in the house some fights, and there was maybe some lack of emotional support on my side for her during her. Her motherhood and she feels that this might have had an impact on his health and might have maintained mom,
Scott Benner 30:33
like, stressful. Yes, festival, you okay, well, listen, you're a boy, you're only as good at this as you can be. It takes a while, it takes a while for you to figure out how to be a father much, much longer than it does. For most people to figure out how to be a mother. It's, it's it's much more instantaneous. A lot of times for women, that it is for men, and you you almost have to see, it must have to see things happen, then that require your emotions that maybe you weren't used to giving in the past. I mean, listen, if if you want my opinion, there's nothing either of you did that? Cause that? I mean, you have somebody in your family line who has an autoimmune disease. And that just makes it more likely, I will assume your your son had antibodies. And he probably they probably got triggered somehow a virus or, you know, some sort of an illness? I mean, I imagine I can't imagine that there was enough stress for a two year old in your household to notice it. But I do understand the feeling that you wish you would have done something.
Sergui 31:46
Yes. Also, people around us they blame. They never say but in a way they they hold us responsible for this, because they can't imagine how two years old boy can get such a terrible disease.
Scott Benner 32:05
So it feels so people from the outside who don't understand how diabetes works. Just assume that you must have done something wrong. There's just that assumption. Yeah, I think that happens pretty universally, honestly. People who don't understand diabetes, just I mean, in their minds, it's an old person's problem. And then when a child, it happens to a child, they just figure you fed them wrong. Or, you know, who knows, took them on a ski trip to Chernobyl. I don't know, you know, I don't know what I don't know. I don't know what they imagined. But it's just not the case. You know, I mean, I was I was a stay at home dad to Arden, I was with her every day. She did not have a particularly stressful life. And I was very careful with what I fed her and where I took her. And, you know, she was still diagnosed when she was too as well. I think it was just going to happen. You know,
Sergui 33:04
I understand. Yeah.
Scott Benner 33:07
Well, I hope that you guys can get past that. And and let it go. Because, I mean, it's not valuable, and you're certainly not going to figure it out. Yeah. And so you guys still split care now your wife during the week, you know, in the evenings in the weekends, still going like that? Yeah.
Sergui 33:26
Yeah. And I am I am the one who is bold with insulin. And she's, she's less bold with insulin. And we was sometimes we peacefully fight about this.
Scott Benner 33:39
Well, I we did that in my house last night. So don't I, I was upstairs working. And the girls were downstairs. My, my daughter is finishing up applying to colleges. This is her very last college to apply to she applied to like 10 of them. She wants to go to fashion school. And she applied to the top 10 fashion schools in the US. And she has already been accepted to most of them. But she still wants to make this this final application. And they're downstairs working working. And I think they left one room and went into another and somehow I don't know what happened. She got away from her phone and lost the signal for CGM, which, you know, with loop, you know, then her blood sugar started to go up. And then she got reconnected. And I noticed and you know, later in the evening, I said to my wife, I was like, how could you guys like, be together for two hours and no one thought about her blood sugar. And my wife's like, well, I thought you were looking at I said, Well, you know, you were with her. I just I assumed you are and we went back and forth a little bit about it. It's I don't think it's very uncommon to have those conversations when your kid has type one. Yes, yeah. Not it's not great. When does the or has he already begun school to stuff on go to school or will he start
Sergui 35:00
He is currently going to kindergarten. But since this is his first year, his most of the times he's sick. He gets the cold or the flu and his most of the time at home. And the kindergarten is close to home. My my wife leaves him there and she goes at lunch to Bolus for the food he's eating. We were thinking, to, to switching to Android APS since we could the remote Bolus for his fields. But it was difficult to she had to learn a new program. So we we decided to go on with loop. No one is going fine. Yeah, it's going fine at this moment.
Scott Benner 35:51
I imagine you is there any way we can't
Sergui 35:54
wait? Sorry. We can also use the remote overwrites in case he needs more insulin. It's okay. Ish. At the moment.
Scott Benner 36:02
Yeah, you is that through Nightscout? Yeah, yeah, I do that too. So I did it last night? You know, it's not, it's not a perfect answer. But you can get by with it. You know, there, there are definitely times I've seen art and be stressed out at school or something. And I can't reach her. And I'll like push her basil up temporarily. And it does, it does help. But what I was gonna say, is there no one at the school who's willing to be involved? Or is that just not how this works?
Sergui 36:36
I don't think they're ready at this point to take this task on because they're still there. They're still learning about the app, and what they might Bolus him at? Some point in time.
Scott Benner 36:51
Yeah, maybe you'll find some people there would save her the trip. It's not far though. You're saying for
Sergui 36:58
her? It's not far. It's so five minute walk?
Scott Benner 37:01
And do you work? Do you work from home? Or do you do you go to a place of business?
Sergui 37:07
No, we used to work from home in, in the first part of 2020. And afterwards, they decided to, to remove this option. So why I have to go to work. Every day,
Scott Benner 37:22
I see. My wife's getting ready to go back to the office. And if I can be honest with you, I'm a little excited. I want everything to go back a little bit more like the way it was she has been working from home, it feels like for two years now. Actually, actually might be coming up on two years. And it can be stressful. I think people just need to get out and move around a little bit. You know, it's, it's not, it's not great to be able to get up in the morning and walk 20 feet to the place where you're going to sit back down again. And you know, it often keeps people working for too long. And it's good to miss people a little, you know what I mean? Yes, we've run out of things to say to each other in the middle of the day. So hopefully, that'll all work out. I think they're starting back like two days a week. And then they're going to try to move it forward from there. So having said that, they've been saying that for the last seven months, and it keeps getting pushed off. But she's supposed to go back a week from yesterday. So I'm, I think she's excited to I'm making it sound like I'm the only one this excited, but I think she she'd like to go back to work as well.
Sergui 38:36
They're, they're putting this off because the number of cases is still big is
Scott Benner 38:42
Yeah. Every time they plan for something happens and and then there's something with the building and something was services and then it was Omicron. And you know, it just kept getting pushed and pushed and pushed. And she said to me the other day, I'm gonna go back on Monday. And I laughed, I was like, No, you're not, you know, there's no way that's actually going to happen. But but hopefully we'll we'll see now Arden uses our, our second car to go to school with so we're, I think I'm gonna be the one left without a car. I think I think my wife is going to drive to work. And Arden is going to drive to school and I'm going to be stuck in the house by myself. So we'll see what happens. Yeah, but Arden is off to school, you know, in the fall, and she won't be taking a car with her. So I think we'll be okay. What is the what's the what's the diet like where you are, you know, is like What are common meals that you have?
Sergui 39:44
I think we have a meat based diet in Romania, but one can also eat vegetarian, Mediterranean or vegetarian. I don't think the diet is very different from To the American one. I mean in this in the cities in the cities because we have McDonald's and KFC. And also people can eat fries with a steak at lunch.
Scott Benner 40:12
Or there are many processed foods, things that come in boxes and bags.
Sergui 40:17
We have those we have, we have a lot of processed food, but one can also eat from the green grocers and can go to the farmers market and get some fresh product. There are a lot of options. Okay, we we mainly cook in our home, but we also buy from restaurants or fast food sometimes because I don't want to restrict him.
Scott Benner 40:47
Is it? Do you find it easier to to Bolus from things you make at home?
Sergui 40:54
Generally, yes, because we use recipes that have been tested, and we know how his blood sugar will react to those ingredients.
Scott Benner 41:08
Are you um, wow, what do I want to ask you here? So do you know how to manage diabetes without the loop? Like, like, what would happen if it just like disappeared? Would you be okay? Or do you think there'd be a learning process again?
Sergui 41:29
He was on pence for one year, so I could manage him with pens. Although I never got to understand how the longest acting insulin works. I never got that. I knew how to Bolus I understood the bonuses. But I always felt that there was something not quite right with his long acting insulin and that thing? I don't know.
Scott Benner 41:57
Yeah, I don't think the lever me are really lasts for 24 hours. So you're probably
Sergui 42:02
yeah, I've listened to your episodes in which you said it's good. It's a good idea to split those doses. But I never got to do that.
Scott Benner 42:10
So okay, you got away from it before that before you try it? Yes, man, it's probably smart. Do you get out of loop often do you ever open the loop and make a manage on your own?
Sergui 42:24
Not really, only if we have problems with the site, or if he sometimes when we put the pump on his belly, he strips it and during sleep and the heme, and the program thinks he knows the pump is on his skin, and we get a lot of insulin on board. And afterwards, I have to open the loop in order to correct his blood sugar right? Or there. But I should do that more often. I should test his basil, but I never I never get to do that. Because at night, if he is stabilized after his evening meal, I am relieved and I'm happy and I can go to sleep. So I Yeah,
Scott Benner 43:09
it's it's hard to want to beta test overnight when you can get a good night's sleep for sure. Do you have people in your extended family who understand this? I mean, can you can you can you and your wife go to dinner by yourself or something like that? Or? Or do you not have anybody to help?
Sergui 43:25
Yes, my mother, she she knows how to interact with the application with a loop. And sometimes the protocol is that she has to call us and tell us what he is eating. And afterwards we can make a guesstimate of his carbs. But in the the last time she she decided to use it on her own. She introduced the carbs she thought were necessary and she took control of the app.
Scott Benner 43:59
Wow. Well, that's great. I mean, it's just nice to have a break. Are your parents or your both your parents together and living?
Sergui 44:07
Yes, yes. They're living in the same city. Does your father having to go first?
Scott Benner 44:13
Does your father have any understanding of it at all?
Sergui 44:17
I think he saw that my mother can use the app and he's happy with this situation.
Scott Benner 44:25
I bet I would be I'd say I'd be thrilled if somebody would figure it out and take it over. Give it give me a bit of a break. Are you planning on having any more children?
Sergui 44:38
I wish we had a brother or sister another sibling but it's difficult.
Scott Benner 44:45
Is it difficult? We
Sergui 44:47
cannot it's difficult to take to make this decision because we don't know if the next child will will have an auto immune disease or will have diabetes
Scott Benner 45:00
It doesn't feel it's a risk, right? It feels like it's
Sergui 45:03
a risk. And and also, because of the costs we are currently having with these supplies. If the supplies were provided by the state, maybe the decision would would not be that difficult to have another child
Scott Benner 45:17
understand. Yeah. You know, it's it's not something you think about often, but that I mean, you just said that it made a lot of sense to me, you're, you're putting out money that would go towards feeding another person or clothing them or sending them to school one day, and instead, you're paying for these supplies. And yeah, it's it would be a leap to make, do you think you're more worried about the money or the prospect of another child having an autoimmune issue?
Sergui 45:51
I think both of those things worry me. Because let's say he or next child can also have another another cannot have diabetes. And that would mean, that wouldn't be so difficult, because we know how to manage it. But it would be it would be difficult, money wise, because we couldn't afford to buy supplies for two children and have a normal life and have vacations and all of the other things, people with, with children that don't have diabetes, buy or enjoy.
Scott Benner 46:32
Where do you go on vacation when you when you leave?
Sergui 46:38
We go in the mountains because we have mountains here in Romania, we can also go to the seaside Black Sea, or we can go to in Greece, in Bulgaria.
Scott Benner 46:49
That sounds nice. My children bother me to go to Greece constantly. That's the place that everyone wants to go. Then there. They keep reminding us that they're graduating. My daughter's graduating from high school, my son's graduating from college. We want to celebrate we want to go to and then they both say grease all the time. Do you think that's probably
Sergui 47:09
it's probably a lot cheaper for us because we can go by car. It's we can drive 10 hours. And we are we can go there. Enjoy a nice.
Scott Benner 47:20
Well, hey, Lily, let me ask you a question. You had to fly across the Atlantic Ocean to go to Greece. Would you do it? Absolutely not. You told me, you told me to find a place in Ohio. Go for a little ride. How to Be wise? Well, I'm the one who's always like, I think that sounds like it's expensive. We're gonna spend that much money. You know, I don't know. Like, I don't know. That's just what they talk about all the time. So we'll see what happens. There's some sometimes Arden says France. And sometimes she says Greece and I don't know if we'll ever do it or not. But it was good to hear from from somebody who can drive to it that may be blind to it wouldn't be worthwhile. I forget what I was gonna say I had a thought in my head about that. Have you ever been to America was my question?
Sergui 48:13
No, unfortunately, I haven't been to America. I wish I could go there's some time in my life.
Scott Benner 48:20
Yeah, it would really be interesting to you to do. Yes. What's your under
Sergui 48:27
specialist? Since I've seen a lot of American movies and American shows and I've read the manga books, it would be interesting to to see the real thing there.
Scott Benner 48:38
Do you think you would do you think it would be disappointing if you got here and you realize that was a lot like Romania, but with newer buildings.
Sergui 48:46
I don't think I would be disappointed because I am conscious that America is a lot of things. And there are a lot of different people in different geographical areas. And
Scott Benner 48:58
I would like to see more. It's not
Sergui 49:00
the same. It's not the same in all the American states.
Scott Benner 49:03
It really is. It's very different. I mean, it's I mean, Romania is probably Gosh, not even the size of one of our I don't know like medium size states I would want I would imagine Yeah, that's it's really something How about anybody in your family has your mother your father, your brothers and sisters, anything like that anybody have been here?
Sergui 49:27
Actually, my my wife, she has been to the US during her student life. She she took on this work and travel option and she, she she worked there during her summertime. And she also got to visit some of the some of the states in the US.
Scott Benner 49:50
Wow, that's how long ago was that?
Sergui 49:55
Maybe 10 or 11 years ago,
Scott Benner 49:58
okay. I'm seeing I looked it up, it looks like Romania is about 70% larger than Florida, just by square kilometers. But it's interesting. I might not be interesting to you. It's interesting to me, I feel like, you know, Arden, for example, is looking at a school in Georgia. And in a couple of weeks, we're going to go visit that school so that she can get a good look at it. And we're talking about driving, and it's going to be like a 1213 hour drive for us. Just to get from New Jersey to Georgia. And I see Yeah, it's, it's, it's quite a, you know, it's, it's, it's hard to even consider, we're thinking maybe we should fly and, but we wanted to drive and kind of turn it into a little trip. So we're trying to figure out what to do. But I don't know, it seems exciting to me to be able to drive from one side of Romania to the other in a couple of hours, that that seems better. I wish I I wish I had that kind of proximity to the things that were, were important to me and around me. What? I was gonna ask a different question. Is there anything that I'm not asking you that you wished we were talking about?
Sergui 51:18
Not really, I had some notes for the show. But then I decided to talk freely with you. I, you invited me on the show. And I wanted to offer this view for somebody from this part of the world because there are not so many episodes with people outside of the US. So no, I think I am gonna go on Sorry, I was I think I am using the same things people on these international groups are using and my only desire is to have these options officially here in Romania. Yeah. I enjoy your show a lot. Because it's not only for the things I learned from it, but also for the therapeutic side of it.
Scott Benner 52:14
How so what about it is therapeutic for you
Sergui 52:20
that there are other people that are confronted with this. And it's nice to listen to their worries and desires and the solutions they find to the different problems in their life? Because it's difficult to discuss diabetes with people that don't have it or don't manage it for other people that have it cannot understand
Scott Benner 52:45
it. Does your wife listen to this at all? Or is it mainly you know,
Sergui 52:49
no, she doesn't listen, because she doesn't have the time.
Scott Benner 52:53
Now, it's just interesting, because mostly when it's one or the other, it's it's it's frequently it's the, the the wife over the husband, but I didn't think she did. I was just wondering, and you and you like that, that interaction between just, you know, a faceless voice out in the world that has pretty much every one of your problems. And every one of your challenges and issues these other people have as well, you can't meet those people anywhere else. And when you go to
Sergui 53:22
school, it's comforting to comforting to listen to people when I do the dishes at night, to listen to people that had the same problem. But as I did during the day, and after a botched Bolus when I'm sad and worried. It helps me to listen to the podcast.
Scott Benner 53:46
When that happens, describe the sadness for me. Is it concern for your son? Or do you feel like you failed? Where does that hit you?
Sergui 53:59
Oh, I I know that he will not be in any kind of danger in the short time. But I'm always I'm always thinking about the long game about the longer term consequences of this disease. And I don't know what will happen because I want to have stability in the blood sugar levels. And sometimes I feel out of control and I don't know what will happen in the future how I will be able to to pass on this knowledge to him at some point.
Scott Benner 54:39
Would you be willing to tell me how this process over the last few years has changed you because I if I'm listening and paying attention, you were maybe more classically a guy when maybe before you had kids, and now you're a person describing doing the dishes and worrying about the Future of Health. So has there been a big shift in who you are over the last couple of years?
Sergui 55:07
I don't think there has been a big shift, I might became even more worried. But fundamentally, I am the same person that is that likes control and that likes to have a grip on things.
Scott Benner 55:22
So you,
Sergui 55:26
but I was indeed more relaxed in the past. Less. So now,
Scott Benner 55:32
for me to was definitely, I was definitely more relaxed before diabetes as well. I said to my wife last night, I was she's like, What are you doing? We're laying in bed. And I was like, I'm rubbing my back. And she said, why? I said, Well, it's been hurting for 15 years. Trying to try to get ahead of it here. Which I'm sure some days is stress, actually. But okay, so it's so for you, it's, it's the feeling of being out of control is not comfortable for you. And the feeling of the unknown, for your son's health is not comfortable for you. And these were not things that you were feeling prior to diabetes.
Sergui 56:16
No. Okay.
Scott Benner 56:18
Do you see that as a liveable way to be or is it something you think about trying to work past
Sergui 56:29
I have come to accept some of the things I'm not so worried now when I see. A high blood sugar, something over 180 I try to those more insulin and take care of it. And I'm not so worried but my, I think about the moments who will be in school and or when he will be a teenager and my wife, my wife, she she thinks this is a very important aspect of his emotional well being and the way he will be able to accept this disease, because it's not enough if we take care of his diabetes now, but we also have to make him think in the right way about diabetes in order for him to take care of this disease when he will be on on his own.
Scott Benner 57:31
Well, I can tell you, there's some things you can't get prepared for. Yesterday, I watched Arden messaging with a girl who they both might end up at the same college and they start talking about rooming together. And I asked Arden afterwards, I said, Did you tell her you have type one? And she said, Yeah, I don't want it to be a surprise to people. And I had to say to her, I was like, you know, some people may be scared of that. And she's like, I know, I just you know, I don't want it to be. I don't want it to get dropped on them at the last second. So I'm telling people what I'm having these conversations and I wasn't sad about it. Like she she handled it really well. It would have been nice if that wasn't a reality for her. But at the same time, you know, she she assessed the situation. And then she did what she thought she was, you know, she shocked me, excuse me what she thought she should do. But later in the evening, after we went to bed, her blood sugar started to get a little low, and I had to help her. And I when I got back in bed, my wife's like, why are we letting her go to college? Like, how's this going to work when she's, you know, not here? And I have to admit, I still one of the things I'm working out. Um, I'm not sure either, you know, but all I know, is that hundreds of 1000s of other people with type one diabetes, go away to college, and, you know, far and wide there. Okay. So there must be an answer that that says, People figure things out, you know, you get what you get, and then you find a way to live with it. For the most part, you know, that does work out for people. So I just kind of keep the faith that answers will show themselves as time passes. I see Yeah, hopefully. Hopefully your son will will have that same experience. You know, yes. It's terrible to worry about things that may never happen and and that even if they do happen, you might not have much sway over to begin with. But I know how you feel. And I don't you know, I don't I don't say you shouldn't feel that way. Wow. Cool. How are we doing by the way? Is this going well for you? Are you enjoying this or are you like, Oh, this guy's boring in person?
Sergui 59:56
No, no, it's going great. Yeah.
Scott Benner 59:58
Oh, good. I'm glad because you Have you ever Are you nervous?
Sergui 1:00:04
Yes, I'm a little bit nervous. But I'm also have I'm calling this cold or flu. I'm having an it's difficult to. Oh, I did. Yeah, it's okay. I'm sorry. We know. Oh, well, it's not that bad. And I didn't want to reschedule the
Scott Benner 1:00:25
as my scheduling terrible and whatever. If you would have rescheduled, your son would have been in second grade by the time we spoke.
Sergui 1:00:33
I don't know what this would have meant. I didn't check the the next available. Slot.
Scott Benner 1:00:40
It's September, I think. Okay.
Sergui 1:00:43
So it's probably the best decision. A good decision. We scheduled
Scott Benner 1:00:49
Yeah, since it's what it is today. April Fool's. No. What was I gonna say? groundhog? What was I thinking? February 1. I think it's Groundhog Day, isn't it? That might I don't know. We don't we don't have that. Yeah, I'm, I'm wrong about that. Groundhog Day is tomorrow. Not that that matters to you. But yeah. Wow. It's February 1. And yeah, you couldn't have gotten back on the schedule until September? Yeah. So for people listening, rescheduling? Don't do it. Don't do it. Unless you've got time, I have had interviews with people that take place 18 months after they reached out eventually, because they'll have to reschedule a couple of times, which is fine. Like I don't mind just slides forward in the schedule. But I have put episodes up with people who I've spoken to, you know, over a year prior and sometimes longer.
Sergui 1:01:40
It's a good loyal to the show,
Scott Benner 1:01:43
I always think that, oh, I always think like Wow, you really like I mean, if you made me plan something next Wednesday, I'd be like, Oh, I don't know if I can do that or not. That seems so far from now. But yet people do it. And I don't bug them. And they're always here, I turn this thing on almost every day, and there's someone on the other end, I'm very grateful for that, actually, the loyalty. And then the concern to want to build on top of the show, which I think is really what you're doing, you're trying to you're just trying to put a building block for somebody else to hear some
Sergui 1:02:16
very Yes. And also the podcast empowered me to such help some other people that were using Omnipod and Dexcom. And sometimes we on this local group we have here, somebody needs Dexcom sensor, and we can somebody else offers to sell one. And I got to sell a few centers because they were having some problems with their shipping. And we discussed about the management style and about the supplies we use. And I found out they were using Omnipod and Dexcom. And I told them about loop. The first time I sent them the documentation. And I told them once more the next time we got to sell them some sensors. And because they were they were afraid to try it I offered to help them with look, although I know this is the contrary to the to the spirit of loop and to the because one has to do with only one one own in order to get it right. But I help them and they they are managing. Okay. Right now with loop.
Scott Benner 1:03:31
That's very kind of you I and I understand the idea that people should figure it out on their own. But I have to be honest with you, if I had to figure it out on my own. Arden wouldn't have it. I don't I know. I mean, what you said earlier about how clear and well written the documentation is you're 1,000,000%. Right. But my brain doesn't work that way. Like I just I don't know how to tell you if I look at instructions. I don't even read them in order. I just my eyes dart around for pertinent information. And I just I don't know, there's something wrong with me. But I don't think I mean, maybe I could force myself to do it. But it would not be easy. And by the way,
Sergui 1:04:11
is it? Is it anxiety or you?
Scott Benner 1:04:15
I don't know what it is. I don't even if I look at a recipe, I just look at the ingredients. And I know there's like there's, you know, like do this first do this second, I have a hard time even looking at that. I just like to dive into things. I open up a box. I don't care about the instructions. It's a It's not. I'm not impatient. And it's not laziness. I just I don't know another way to say it other than my brain just doesn't work that way. I think that's why I think that's why I'm I'm good at talking about diabetes because it's not if it was segmented or bulleted, you know, I wouldn't be the worst person to sit down and read through it. You know, a list of 10 steps you were supposed to take? I can't. I can't do that. You know, while you were talking earlier, it made me think and I looked them in the in the pretty recent history. I have 5000 downloads in Romania. I'm huge in Romania. This is very,
Sergui 1:05:19
I don't there is very little or a lot. I don't
Scott Benner 1:05:26
Well, I mean, for, you know, listen for in the Eastern European country where, you know, I would think it would be pretty unheard of for you even to figure out that I exist. That's a that's a fair amount. It really is. It pretty, pretty comparable to Saudi. I'm looking around here, Russia, India, the shows really picking up in India over the last year. I'm noticing more and more listeners in the Facebook group who are from India. But yeah, I mean, you know, once you get into Germany, France, the numbers jumped up significantly. United Kingdom, it's actually pretty huge. In the United Kingdom, there's hundreds of 1000s of downloads in the United Kingdom.
Sergui 1:06:16
Because they're also they're already English speaking. Yes.
Scott Benner 1:06:19
Yeah. They can probably make a little more I probably don't do I sound? Do I speak quickly for you?
Sergui 1:06:26
I know you speak very fine, I can understand you because but I don't have the practice of speaking English. And that's why my, my English is not that good. But I do. We consume a lot of things issue speaking products here in Romania.
Scott Benner 1:06:41
Well, what I have to say, I don't agree, I think your English is great. Like I've heard you, like, slow down to find a word. But now that I understand you're sick to I don't even know if that's what you're doing. So no, I have no trouble understanding you. Or we're keeping the conversation going whatsoever. Yeah, I just never would have imagined you may be my my emissary in Romania. I appreciate this. Do you tell people about the podcast?
Sergui 1:07:09
No, not really, because I don't know. I never got to tell anyone about the podcast. Because I don't think people hear our podcast listeners in generals. And I feel like this podcast is a niche thing. And I don't know if they could listen to it. Yeah.
Scott Benner 1:07:33
I mean, listen, I'm not gonna lie to you that, you know,
Sergui 1:07:35
it has a very American vibe to it. And I think people have to be accustomed with American culture in order to start listening to it.
Scott Benner 1:07:46
Well, just to say that in that part of the world, I did not expect to have many downloads. And to be perfectly honest, I don't accept in Romania. That's insane. I just I've never really looked at it before. And now I'm looking oh,
Sergui 1:08:00
maybe, maybe. Those are my downloads.
Scott Benner 1:08:04
I don't know you. I don't think you can listen to that. You didn't listen to the show. 70 times over. Did you like the whole thing?
Sergui 1:08:10
Oh, no, no, no. Oh, well, I've listened to most most of it. I have the up to date with the episodes. I think I have 10 or less than 10 episodes I have to listen to oh, that's because you put you put out a lot of episodes every week.
Scott Benner 1:08:24
I'm prolific. Yes,
Sergui 1:08:26
you are very pointed.
Scott Benner 1:08:28
Listen, I got that. Understand what I'm saying I need a place to put
Sergui 1:08:31
them. That's a very good thing. Yeah, it really is.
Scott Benner 1:08:35
It's unexpected, I guess is the best, best word for me to use. I didn't think you know, I asked on the pod. My gosh, you know, eight years ago, almost. I was like, I need you to buy an ad on this podcast. So I can tell my wife, it makes money so I can do it. And you know, they gave me a very little bit of money and bought an ad and it was incredibly helpful. So I, you know, that's what got me started. I never imagined it would be so popular that it would that it would do this actually last night as the as the month ended. I looked at some numbers. I'll share them with you. I have no one else to tell about this. I just keep it for my own edification. But the month of January 2021. had more downloads by 100,000 than the year 2018. I see which is which is insane. And the last three months had more downloads than 2019. So
Sergui 1:09:43
and the majority of these downloads come from the US or they come from
Scott Benner 1:09:48
all around the world. Yeah, overwhelmingly they're from the US but then places like Canada, Australia, United Kingdom, those My next strongest downloads. And it's picking up in other places picking up in Japan, like I said, India, South Africa. It's fascinating where, where people find it. You know, I just I just interviewed a boy, like a 17 year old kid from Ecuador recently. And he listens. So it's getting there. Hopefully one day people will talk more freely about it. But I still think the problem is sort of what you brought up earlier is you don't know what anybody really who has diabetes that you could speak to about it. It makes it that much more difficult to share, because you don't meet people who who would be interested, you know,
Sergui 1:10:42
I mean, I know that the people in the local diabetes group, but I do it would be difficult to recommend the podcast because this seems like a personal very personal recommendation to make. Certainly. Yeah.
Scott Benner 1:11:00
Plus, they probably hate me. And then that, then they they're looking at you and wondering why you like you're listening to this, yeah, then they start judging you, I understand what's going on. Don't worry. You don't want to you don't want to be embarrassed by me. I hear it. I feel like we're dating.
Sergui 1:11:17
I don't think that it's that but the most of the time, they are looking for some fast device or some website, they can read some information. In the podcast, the broadcast takes a lot of time in order to, to understand it and to, to make the most of it.
Scott Benner 1:11:36
It's I agree, it's a it's a commitment, but I think it pays you back from that commitment to in a way that just reading an article or hearing a little bit of information, maybe can't enrich you as much. So I listened. I'm thrilled that you reached out. And I'm so glad you found the podcast has been incredibly enlightening for me talking to you. I want to make sure you don't have anything else you want to say before I say goodbye. But I really do appreciate you doing this.
Sergui 1:12:06
Yeah, it's been great, Scott. Well,
Scott Benner 1:12:08
I hope you I hope you feel better as well. I felt I feel badly that you're sick. No, it's
Sergui 1:12:15
going away. It's, it's fine. I just wanted to thank you for the podcast and for, for the opportunities that it gave me to help other people with loop and with managing diabetes for their children.
Scott Benner 1:12:33
It's my pleasure. I I appreciate that you listen, it's I hope you can I hope you can understand how kind of fantastic and strange it is to learn that there's somebody you know, in Romania listening to me talk about diabetes, it's it's certainly unexpected when I get these notes, so I really do appreciate you telling me or I would never have any way of knowing. Yes, thank you. Please tell your wife I said hello, even though she doesn't know me. And you know, and he did want to ask you one question. When your son's a little older, and he starts involved getting involved in sports. What would the what would be the sport of choice where you live?
Sergui 1:13:23
This poor like choice? I think, I think it would be soccer, as you call it in the US. But I'm not such a big soccer fan. So maybe he would go swimming or riding a bicycle.
Scott Benner 1:13:42
Gotcha. There's no
Sergui 1:13:45
Soccer is the national sport running.
Scott Benner 1:13:50
I have it right. It's just there's so many options here that that people choose from. And I was wondering you know, like there's is there baseball where you are?
Sergui 1:14:00
No, no, nothing. We don't have baseball in Romania or in Europe. I don't think it's that
Scott Benner 1:14:06
big. Right, cricket?
Sergui 1:14:08
No, no, that's India.
Scott Benner 1:14:10
That's just just pretty specific to India.
Sergui 1:14:15
I mean, football, from my knowledge, yes, we I don't know anybody who's playing cricket in Romania or Europe. You know, there might be clubs but but it's not a big thing. Yeah. See now that your soccer, tennis These are big things. cycling.
Scott Benner 1:14:31
Cycling. Yeah, I realize now that you're saying that that I see men playing cricket all the time. But now I realize they're all Indian. So yeah, I guess now I'm thinking about I've never seen anybody but but Indian men playing cricket around me, but I just we just have such a mix of people that you you just kind of get accustomed to it. You know, it's funny. I never considered that those guys weren't mixed very much. That's interesting. Okay, well Um, I appreciate you sharing all that with me, I really do.
Sergui 1:15:04
Sure, yeah, well wanted to tell this funny story because I helped that family with a loop. Because they were, they were already using Omnipod and Dexcom. And afterwards, I, somebody requested some help on loop, they weren't using Omnipod, they were only using Dexcom. And because I was very excited from the first time I got this very positive feeling from helping them, I decided to help this family and I, I sent them the documentation, they try to, to build the app, and they didn't manage to do it. And afterwards, I decided to go to drive to their home, two hours drive. They never used Omnipod before, and I installed the pump on on their son was a teenager, but in the same time I was I was feeling very strangely because it wasn't quite right. But there was no one else to help them. The father of this teenager was a cop, and he was looking suspiciously at suspiciously at mean, doing all those things. Now I was working on on my last laptop trying to build their Nightscout and the app, and they were looking at me in the same time, but I managed to do it finally. And they were relieved.
Scott Benner 1:16:28
Yeah, well, they were probably very grateful. And at the same time thinking Who would do such a nice thing? You know, it's, yeah, I've had that experience. By the way. I've I've there are a couple of people local to me that I've helped. And, and I have been in people's homes. And it's it's a, it is a different feeling when it's not somebody you know, at all I can, I can understand completely what you're talking about. But it's really nice, easy to do. And you got a lot out of it, too. It felt good. Yeah, it
Sergui 1:16:59
felt really good. Especially because I know it will make a difference in the long time. And the more stable blood sugars and lower blood sugars. And this could mean a lot for a child and a teenager.
Scott Benner 1:17:13
It certainly can I get to feel like that every day. But it's very exciting to hear that somebody else gets to feel that way. Because I know how I know how personally valuable it is, honestly. And then
Sergui 1:17:24
I would I would have never would have done it without listening to your podcast that would I would never have have discouraged to talk to people and to tell them that we can do this together. We can build the envelope app and yeah,
Scott Benner 1:17:41
that's that's extraordinary. I appreciate you sharing that with me very much. Thank you. Wow, now you touched me at the end there. I didn't expect that I I feel like I was in Romania helping somebody with loop. Although you were you were much better suited to do it. Because if I showed up with a laptop, I'd be like, I don't know. I gotta call a guy. Don't know how to do this. Wow, thank you so much.
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#740 After Dark: When In Rome
Erin was diagnosed with type 1 diabetes in college.
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+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends and welcome to episode 740 of the Juicebox Podcast.
21 year old Erin is here today, she was diagnosed while a college student and she is going to share rather openly about what it's like to be at college as a young girl living with type one diabetes. While you're listening today, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. If you're a US resident who has type one diabetes, or is the caregiver of someone with type one, please consider going to T one D exchange.org. Forward slash juice box and filling out the survey. When you complete the survey AT T one D exchange.org. Forward slash juice box. You'll be helping people living with type one diabetes, it takes fewer than 10 minutes is completely HIPAA compliant, and absolutely anonymous. These are not difficult questions, simple questions that you already know the answers to about your type one or your child's type one. T one D exchange.org forward slash juicebox. This show is sponsored today by the glucagon that my daughter carries G voc hypo pen. Find out more at G voc glucagon.com. Forward slash Juicebox Podcast is also sponsored by the Contour Next One blood glucose meter. Contour next one.com forward slash juicebox. If you want accuracy, you want the Contour. Next One.
Erin 1:59
Hi, my name is Erin. I'm 21 years old and I've been a type one diabetic for nine months now.
Scott Benner 2:05
Perfect. That was perfect. Nine months. Yes. Were you in college when you found out?
Erin 2:13
Yep. Mike, it was my junior year of college.
Scott Benner 2:17
Were you actually away at school? Or were you home when it happened?
Erin 2:21
I was away at school. But luckily, I go to school in Boulder and my parents live in Denver. So it's very close wasn't too far away. Yeah. So when everything happened, I was able to go home and be with them instead of being stuck at my college house with seven other girls.
Scott Benner 2:41
None of them pre med I imagine. Nope. Not Not one. You couldn't get a little lucky.
Unknown Speaker 2:47
Oh no.
Scott Benner 2:48
So how did it how did it present? And? And how did that whole part go?
Erin 2:52
Oh, it started at like at the end of August. Great. When I got back to school. I was just feel like off like very tired. But like being a college student, I was going to school I was working. And I was babysitting like twice a week. So I was working going to school, but I just didn't have the energy like I used to. I was going to bed every night with like, really bad stomach aches. And so I'm like, I don't know what's going on. But like, it's just college, like, I'm just stressed out, whatever. And then I started losing weight. I lost about 20 pounds, which was like, I've been the same weight since I was like 14 years old. And like I'm a healthy weight. Like, it was like an extreme weight loss where I was like, okay, like, I'm really skinny now because this isn't right. Like, I haven't worked out. Something's wrong
Scott Benner 3:41
over just a couple weeks. Is that right? Yeah,
Erin 3:45
I would say like three to four weeks. And then I had gone home on like a Sunday to see my mom and she was like, You look so bad. She's like, are you doing? Are you doing drugs? Like, you look so thin? And I'm like, I'm not doing drugs. Like I don't know what's wrong, and I didn't have a scale at school. So I hadn't weighed myself and I came home. And I always had been around like 140 pounds and I weighed myself and I was like 111 And that was like, Okay, I think something's wrong. Like I'm not trying to lose weight. Like
Scott Benner 4:14
yeah, here's something up for context. How tall are you?
Erin 4:17
I'm five six and like a half. So yeah, I was like very like healthy comfortable weight. Like I was not trying to lose weight at all. So you could you could see it in my face and my arm like I just looked sick. And so I I'm from like Chicago area my parents like moved out here when I came to school and so I since I've been at school I haven't gotten like a a doctor like I haven't had like a checkup or anything since I've lived here and so I'm like I don't know what to do so I call Oh, Aaron heard that says they're in network.
Scott Benner 4:56
All right, I'm sorry. You disappeared for a second like you got like a blip you called
Erin 5:00
And can you hear me now?
Scott Benner 5:01
I can. Yeah.
Erin 5:02
I was saying I called or I went on like my insurance website and started calling every doctor and network just to like, try and find someone because I didn't have anyone, right. And they're all like three weeks out or whatever. And I had gone to like this, like natural doctor out here just like supplements and stuff. And so I called him and I'm like, I've lost 20 pounds in the last like, few weeks, can you order me some blood tests? Like, I know something's wrong. Like, I can't get in to see a doctor, can you just go send me blood tests, I feel like something's wrong. And I went and did that. And then I got all my blood test results as it's sitting in a class. And I'm like, I get the notification. And I'm like, Oh, my God, oh, my God, oh, my God. And I'm googling every blood test that I was abnormal for. And I just looked at my sheet and I was like, 480, my glucose was 484. But for some reason, like, I saw that number, but I'm like, oh, that's like it for people who have diabetes, that doesn't matter. And I had like a bunch of other abnormal ones. Like, there's like a CA blood test, which is like a cancer one, which I was like, extremely elevated for. So I'm sitting in class, and I'm like, I have cancer, like, I'm done. And so that was like, so freaky. And I like, ran out of class was like bawling, crying, whatever. And then
Scott Benner 6:24
what class were you in? I know, that's the the weirdest.
Erin 6:26
It was an accounting. It was an accounting class. And I'm like, sitting there and I'm in the back. So I'm like, looking at my phone. And I'm like Googling and I'm like, What's going on was we're on and and luckily, we're still wearing masks and classes. I ran to the bathroom, bawling, crying, and then I like, wipe my tears, like, go back into class, and finish it out. And so then I call like that doctor, and the whole weird thing is is everything like I mean, he's he's not like me. He's a doctor, but he's not like, Yeah,
Scott Benner 7:00
are you blipped out again on me? I'm not sure why so just It's okay. It's probably because you're you live near mountains. But in I don't live that close to
Erin 7:09
mountains. My wife, my husband, should we go?
Scott Benner 7:14
Are you on your phone? No, I'm
Unknown Speaker 7:16
on my computer or your
Scott Benner 7:17
computer. Okay. Do you have a possibility of like, hardwired? Do you have like a an Ethernet cable or No? No. And you just move slightly closer to the router kind of thing? Yeah. Oh, wait a minute. Before you do that on is your phone near you? Yeah. Are you getting text messages or other mess? Yeah, yeah. That's what's happening.
Erin 7:42
As you turn off my Wi Fi.
Scott Benner 7:45
I think if you are using a hotspot, I can use a hot No, no, what happens is that I have it happened to me too. So I just silence my phone. Okay, and move it away from the microphone a little bit. Okay, when my phone is too close to the microphone and I get a message, I get that electronic breakup. Okay, I'm gonna guess that's just through my phone. Okay. Wait, it's also not your Dexcom it works.
Erin 8:15
I have my I have my Apple watch. So I have my okay, I can see it. All right. Maybe that's making it bad.
Scott Benner 8:21
Maybe we'll find out now that the phone is across the room under a pillow somewhere. Yeah, literally. So I'm sorry. So just I apologize. Do you remember where you are?
Erin 8:31
Um, yeah. Okay, good. So I really didn't even think I had diabetes. It was didn't even cross my mind, even though my glucose was like 434. And I called that, like, natural doctor. And he was like, You need to go see like a real doctor and figure out what's going on or
Unknown Speaker 8:50
whatever. Okay.
Erin 8:52
Luckily, my dad, we had like a friend who was like a family doctor, whatever. And so this was on Thursday. And he got he got me in on Monday morning. And this is where it gets crazy. Because I go in there. And he's like, yeah, like, I'm pretty sure you have diabetes. And I'm like, Okay, I'm not overweight, like because I didn't really know that much. And like, I know, I don't have type two, like, I'm very healthy, whatever. And I was like, I thought you get type one when you're little. And he's like, no, like, you can get it whatever type of thing. And so he's like, I'm pretty sure you have it, but I'm going to send you to an endocrinologist like to be sure, but we're gonna give you he gave he prescribed me a FreeStyle Libre, without giving the insulin. He's like where this you can check your your numbers but like, I'm not sure. I'm not sure if it's diabetes. So when you go see that other doctor, you'll be able to figure it out. And I'm like, okay, like, sounds good, whatever. And well,
Scott Benner 9:54
does it sound good though, Aaron because if it's not diabetes in your mind, you feel like you have cancer.
Erin 9:59
Well Well, at this point, I'm like pretty stressed, I'd be like, I gave up on the cancer thing. I'm like, I'm starting to understand this probably diabetes. But then I'm getting the debrief where I can see my numbers, and I'm in the three hundreds and four hundreds. And I'm like, How do I fix this? Like, he didn't give me anything to fix it. And so I spent the whole weekend like, with my parents just being like, What the hell was going on? Like, why did he give me this? And so then I go to an endocrinologist, like, like, the main doctor couldn't see me was that physician's assistant, and you get in there, and she's talking me like, I'm two years old, like, hot, like you have diabetes. diabetes is when the pancreas attacks itself. Like, just like the most basic definition like, okay, lady, I get it, like, how do I fix myself? Like, I was very much like, I want to feel better. I want to take insulin, like I had done research and like, I want this and this, because she, she was like, Okay, we're gonna give you Lantis. And I'm like, What about the short acting? And she's like, Oh, I don't think you're ready for that. And I'm like, I want it. Like, I know what it is. I want to have insulin when I eat. And so I had to, like, convince her to like, let me have the homologue. Right. And so she finally was like, okay, and then she's teaching me like, how to use it or whatever.
Scott Benner 11:15
I'm always fascinated by that, by the way, that the doctor says, you know, you can't have this, you go, Oh, come on, and they go, alright. Like, like, I'm
Erin 11:26
not a little kid, like, I'm 21. Like, I'm an adult, I am. Like, I'm, I'm pretty intelligent. Like, I can figure this out, I want to figure this out. I don't like feeling bad. Like, like, let's, let's do this thing. And so she agreed to give it to me, whatever. And then that Friday, I saw the diabetes educator, which was one of the most horrible experiences of my wife, she gave me like, I still have this sheet. It's like a sheet. It's like, you can eat 1500 calories a day. And she's like, do you like eating three or four meals a day, and I'm like, I'm in college, I eat like, I don't know how many meals I eat, like, I eat something different every day. And she's like, You have to eat at the same time every day. And it's like, morning for breakfast. So you can have 30 grams of carbs and get one snack or 15 grams of carbs, and this whole list and I'm like, start crying. And I'm like, I can't live like this. And so my mom has a friend who is type one. And she told us about your podcast, and how there's like a whole list of like, doctors on here have like good doctors in the area. And so my mom went on here and found one, and they're like, luckily, there wasn't, there was an opening, like, a few days later for me to go in. And then I go there. And it was one of the best experiences of my life. And so now my endocrinologist is truly amazing. And I'm so grateful for everything they do. Because when we when we got in there, it was like, I was in there for like six hours. And they were explaining everything to me. And like it was just like, totally different things
Scott Benner 12:58
are you're, you're blowing my mind. And you wouldn't know it. But I can't go in your mind because I can picture myself sitting at this desk, editing a show and thinking, you know, people ask about good doctors all the time. And then a bunch of people show up on the Facebook page and say, well try this when I try that one. I think so many people have good advice about this. I should probably just make a webpage and put them all there. Like, like that was like a throwaway thought in my head while I was doing something else. And well, they might have had it like three years ago. That's what's freaking me out. I don't know why. That's really just wonderful, you know?
Erin 13:39
Yeah, I mean, I'm so like, I don't even have words to explain like the gratitude I have for like finding our doctor because they they're just amazing. And like if I had stayed with that doctor telling me I have to eat what you know, on a schedule, and can you ever I want like, I don't know if I would have made it like literally
Scott Benner 13:59
Yeah, no, because they were giving you sliding. They were giving you a sliding scale basically. Like yeah, this much eat this many carbs. At this time. Give yourself this much insulin. Was that what they were doing? Yeah, that's sliding scale
Erin 14:12
is like one to one to 15 grams of carbs. And then so then there was like a big three and it's like breakfast, three units, 45 grams of carbs, one snack 15 units. And I'm like a very like, I like like schedule. Like, I like patterns. I like that stuff. But I'm like, I can't do this. Like I want to eat whatever I want. And then there are times I'm like forcing myself to like eat a car when I like want to have a salad. I'm like forcing bread down my throat that I don't want to eat. And I was gonna have to
Scott Benner 14:38
eat at least 15 carbs. Yeah, right. And so so if you did you ever find yourself in a situation you're like, Well, what I want is 20 carbs. So I'm gonna have to I'm gonna have to jam 10 More in to feed the insulin.
Erin 14:52
Um, I mean, luckily I was only I didn't do it for I went to my next doctor. It was like five days. So, yeah, I mean, like it was in the doctor I go to now was booked out, like always like, you know, six or eight months like the fact that I got in there was like, one in a million chance that he had to cancel it.
Scott Benner 15:13
Yeah, shout him out. What would you say? Shout him out? What's his name?
Erin 15:20
Um, Dr. Gottlieb. It's an it's the Barbara Davis Center in Colorado. Yeah, it's an incredible place. And it's like all it's only type one like, it's there's research going on. It's a part of a research study right now. Like, it's just, it's very happening there. And the day I went there, she was like, put me on a Dexcom. They gave me one within that those within 10 days I had my next one's like shipped to me. Like it was incredible.
Scott Benner 15:50
No, that's it is a big difference when they know what they're talking about. Versus Yeah, at least your first person was thoughtful enough to be like, don't ask me go find someone else. Yeah, you know, but then the next person is like, don't worry, we know what to do. I'm gonna give you advice from 1983. Yeah, thanks a lot. But
Erin 16:08
yeah, I know that I'm like, okay, like, I don't, and she was like, telling me like, help me healthy foods where and unlike, healthy, like, I don't need, like, I don't need this advice from you. Like, just like, I was just so frustrated. I'm like, I can't do this. On top
Scott Benner 16:23
of all that. Did you expect to get diabetes? Like Do your parents have it or somebody in your family or anything? Nope. So you're shopping
Erin 16:31
like that? It was? So out of the ordinary? What's super weird is when I was 16. I had like, like, my mom and I have always like, my mom was refrigerators hypoglycemia, like, where we would get like, super, super shaky. Like, when we hadn't eaten in a while, which I know like, that happens, people but like, it'd be like the sweating and the shaking. And so I went to an endocrinologist at 16. And was like, I think I have like hyperglycemia and I was fine. Like nothing really happened from that. But they had me wear like a libre for like a week, which is so funny thinking about now because like I was completely like normal. That and now I'm like, obviously.
Scott Benner 17:12
Your normal. Yeah. diabetes.
Erin 17:16
I know. Yeah. I had I had Eric was read normally you can see.
Scott Benner 17:20
That's right. I cannot. So I have a question. Yeah, you are? Do you leave school for an amount of time to figure this all out? Are you handling this while you're at college?
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Erin 20:40
The week, the weekend after I got like, they told me it was diabetes. I was at home with my parents. But then within like four days, I was back at school drinking alcohol. Like I was like, I'm not letting like I'm like, I'm ready to go. Like I was like, I figured it out. I'm ready to go, which definitely wasn't played smartest thing, but I, I just didn't want to miss out on stuff with my friends. And that was just kind of like, I like I want to be back at school. But it's definitely hard. And then I started going out and like people what's on your honor? What's that? And that's the whole Oh, I've tried your diabetes. What? And then it's like the whole 10 minute thing to every person. I see.
Scott Benner 21:33
The story you told me you've told a few times.
Erin 21:35
Oh, yeah. Yeah. So I think I've gotten it down. But
Scott Benner 21:40
ya know, you do when? So when you went back? Just you mentioned drinking right away. So were you trying to kind of parse this out? Were you involved in drinking prior to diabetes? Or did you go back and you're like, you know what, I haven't done my life that now I realized I'm just gonna do because what the hell? Like, which is
Erin 22:00
no, I've been drinking for a while. Like, that's when I'm at school. Like, I enjoyed like party and go out like, that's, that's what we do. Okay, so
Scott Benner 22:10
if I need an accountant in a few years, I want to ask someone else or no.
Erin 22:16
No, I'm, I'm good at school. Drinking, I've got I've got a boat.
Scott Benner 22:25
I'm good at school. And I'm good at drinking. Yeah. Well, congratulations. That's gonna go right on your CV. I can see your LinkedIn right. Nobody ads when they're drunk, like, Aaron, that's your that's your tagline? And then, yeah, yeah, that's a good, yeah, you can have a glass of wine while we're going over your taxes. And you're sad about how much money you send to the government? Yeah, literally, what are you hoping to do when you're done with college?
Erin 22:54
Um, I'm doing an extra year of school to get my Master's in accounting, and then I'm going to sit for the CPA exam.
Scott Benner 23:00
So the family business or was that just something you wanted to do?
Erin 23:05
Not affiliate business. I just, I wasn't when I got to school. Like, I was just in like, the General Business School. And like my first accounting class, like, I was just really good at it. Like, I've always been a math person. And I just like, like, did and, you know, I was just like, Yeah, I think I could see myself doing this. And I just did like an internship this summer and really liked it. So that's the plan.
Scott Benner 23:29
Well, I might need an accountant next year. So hurry up. I cool. I keep I keep asking my guy. And he's like, I don't know. And I'm like, Could you say something more valuable than I don't know. I keep thinking, You know what, I keep thinking, I keep thinking that he wants me to do something that's not completely on the up and up. So he doesn't want to say it out loud. And I'm like, What are you trying to say? Exactly? Like, you never really says what he says he's like, you know, you could probably reduce your, your, your tax burden. And I'm like, yeah, what's the rest of it? How would I do that? He doesn't say anything. Do you think he's thinking something out? You don't know. But I always wonder I'm like, I wonder what he's saying right now. Yeah. Anyway. Okay. So talk a little bit. Aaron, about the college experience as it relates to alcohol and drugs to I don't mean it like do you do drugs? But I mean, do you? I don't know. Another way to say it. Because if I say,
Erin 24:26
like school occasionally like smoke, we are taken out a bowl. Yeah. Okay.
Scott Benner 24:31
So, so let's, I mean, for people who aren't in school now, or who aren't inclined. You go to college out of high school. Had you drank in high school? Yes. Okay. Had you smoked in high school? Yes. Alright. So this was not like a new thing. Yeah. Is this because you live in Colorado?
Erin 24:52
No, I mean, I'm from the suburbs of Chicago. I grew up there my whole life. Like my dad got a job out here and I had I have a brother who went to school here too. And so they just decided to move out here. So I live out here now, but I'm not from your
Scott Benner 25:08
social drinking a way of life and your family. Like are their drinks?
Erin 25:12
Actually, no, my dad is actually a recovering alcoholic, and sober for like, 20 years into my mom never really drink. And so I'm a very person when it comes to drinking, like, I know, the effects that it can have, like, I've seen it. And obviously I have like I can I could have addiction genes to like, in from my family. So I'm very like conscious about it. And I, you know, I've never been like, drinking to like, not feel some you know, drinking in a bat. It's always just been oh, we're going out. So,
Scott Benner 25:44
yeah. Do you see that from kid to kid like in school? Like, is there a difference between social drinking and blackout drinking?
Erin 25:52
Oh, yeah, definitely. Yeah, there's not to be stereotypical. But it's a lot more guys who were just like, blacking out, you know, they're just drinking and they get whacked out with their fraternity brothers. God knows what happens.
Scott Benner 26:07
I liked the way you said that. God knows what happens. When everyone is this an after dark episode.
Erin 26:12
Um, that's what I like. Yeah.
Scott Benner 26:15
So yeah, so I want you to tell me when you say God knows what happens. What popped into your head? What do you think happens?
Erin 26:24
Um, I don't know, Blackout hook up with random girls or like, get in fights on the street.
Scott Benner 26:31
I don't know. That you?
Erin 26:34
Yeah. Yeah. Like boys are just crazy. But my son Yeah, I would.
Scott Benner 26:40
Like my son told me a story about guys that got drunk and broken ice carving. And I was like, what? And they're like, they were walking around. They saw like this big ice carving and they just knocked it over. And he's like, they're not like that when they're not drunk like that.
Erin 26:56
Yeah, like the in the stealing like people just like, even like when we'd have parties at our house. Like, they're a group of guys extol. Like our our like toilet paper like holder. I'm like, what? Like, what? What inclines you to do that? Like, what? Like what? Like, he's just like weird things he can like, now we can't put anywhere and you have like, a toilet paper holder? Like what? That's so we're here.
Scott Benner 27:22
Are you straight? Are you looking for boys? Well, what are you straight? Yeah, yeah. Does this scare you? Do you look at them and think, Oh, God, there's gonna be no fun.
Erin 27:33
Yeah, it's a worry of mine. I mean that. And because I am a part of like, Greek life. And so I hang out like with a lot of like, Attorney guys, and like, they're just so immature. And so just yeah, I'm like, I don't know where I'm gonna find a husband. But it's not here.
Scott Benner 27:54
That you think the boys somewhere else are different?
Erin 27:57
Well, I think at a college, I think hopefully they'll grow up, but
Scott Benner 28:01
I'm still sitting on it. So maybe you'll get married when you're 40. That'd be nice. Fine.
Erin 28:08
I hope I get married before then. Find a
Scott Benner 28:11
nice grown up boy by about 40 years old. Well, that's so that's interesting. So how does the drinking? Like let's just we'll do one at a time this drinking? Yeah. Impact Your the way you think about your blood sugar's like leading up to drinking? Are you like, do you plan for it? Or how do you handle it?
Erin 28:33
Yeah, I definitely plan for and it was one of like, the first things I told my doctor and was like, How do I drink? Like, how do I go about drinking with diabetes, because I had talked to my mom's friend about it. And she was saying how, like, you go up when you drink and you drop, like, six hours after whatever. And so I knew that. But especially in the beginning, I hadn't really had like a real low yet. So I didn't even really know what to expect. So there was a lot of fear being like what's going to happen. But from the start, I would always make sure I ate before, like, eat a good meal before and I just steered away from any sugary drinks. Like I mostly just drink like Seltzer, like white clouds or whatever. But you have like two grams of carbs. And so I would just never, and I still really don't ever give myself insulin for alcohol. Like I just don't even even if I'm having a sugary drink. I really don't give myself insulin for because I know I'm going to drop. And like it's just not worth the anxiety of like, worrying about going low. And it's I'm on a like on a pump now, which makes it 1000 times easier. But with MDI, like, it was hard because you couldn't change your Basal rate. And so like I did have a lot of lows. Like in the mornings and just from not being able to change it and not eating enough and whatnot. So
Scott Benner 29:58
what do you consider low
Erin 30:01
Under 70,
Scott Benner 30:03
and were they hard to bring back up?
Erin 30:07
Um, no, no, I, yeah, I just like, I've always been like an anxious person. And so I like the lows. I've had a lot of anxiety about them. And I did have one low that I went to the hospital for. So that then caused a lot more of anxiety, which I've been working on. And I'm better again now, but it's just a hard. It's a hard feeling.
Scott Benner 30:37
Yeah. I have a couple of questions. And I'm sorry, if I feel clunky. What I've learned is if I'm speaking while you're speaking, then we get that electronic sound. And so I'm trying not to step over you. But I'm still trying to interject when I have a question. So my first question, yeah, my first question is, Does dad have anxiety?
Erin 30:57
I would say yes.
Scott Benner 30:59
Do you think he was drinking to help him with his anxiety?
Erin 31:04
Um, yeah. That's the thing. I've, that's never been like, how I cope with it. So.
Scott Benner 31:10
And then, when you said you ended up in the hospital? So did you? Were you so drunk, you couldn't help yourself? Or was this not related to drinking?
Erin 31:21
Well, this is actually so I haven't been gone to this part, really. But so starting in January of this past year, I studied abroad in Spain. So it was like three and a half months after diagnosis, I got on a plane and ship myself off to Barcelona. And my bad lo happened. When I was in Barcelona, I had been out partying all night, was fine, like, woke up. And ironic enough, my mom was visiting me at this time. And so and I was with a friend, and we went to get breakfast, and reading, we're sitting at the table, I ordered like a chai latte and a pancake. And so I like gave myself a good amount of insulin because I'm like, child who is in the sweet and the pancake, and I always Pre-Bolus which, since this has happened, I don't really Pre-Bolus When I'm out at restaurants, because sometimes they forget to put your food in and bad things happen. So I had Pre-Bolus. And my food wasn't coming out, I started feeling really weird. And I had free start eating them. And the friend who I was with was like, visiting me. And she hadn't been around me since I had diabetes. And like, as this was happening, she was asking, like, what happens if you get really low, and I like stood up my head like slammed through the table. And I fell back and like passed out. And I brought my mom was like walking by the restaurant cuz she was coming to meet us heard screaming and runs and thinking like someone seven heart attack. And she sees me on the ground with like, the little of my face, because I had hit my head sat on the ground. And so that was the most frightening moment of my life for sure. And I think for her too, and I don't even know how low my sugar got, like, most insane no one speaks English. So or like she has diabetes, and they're all like what we all know,
Scott Benner 33:12
Greg. Hey, yeah, a couple things here. Did you have a seizure? No, you didn't have a seizure you pass out as serious. And as horrifying as the story is, did your friend later say for five seconds? I thought while you were really committed to answering my question about what happens if you get
Erin 33:34
because I know she was so freaked out.
Scott Benner 33:36
I would have been like, wow, Aaron is really going for it with this explanation.
Erin 33:41
Yeah. Yeah. Literally. Not laughing
Scott Benner 33:45
at your obviously your situation was terrible. But I just I love the timing of it. She's like, so what happens if you're low? You're like, let me show you.
Erin 33:53
I know, it was because I was telling you, I'm like, I don't feel good. Like, what I was eating food snacks. And so but I it was just the combination of the drinking because also in Spain, you go out till five in the morning. And so at this point, it's like 10 So I only stopped drinking five hours ago. So the peak of like, dropping me was right then. And I Pre-Bolus for food that took too long. And it just was a mess and a half
Scott Benner 34:16
had you slept.
Erin 34:19
I slept for like three hours. I think
Scott Benner 34:21
part of it is also the low. I'm not sleeping. Well. I've seen that before to where people experienced crazy loads if they're staying up like, like crazy amounts of time.
Erin 34:34
Yeah. And that was like a majority because I was in Spain for about four months. And I had I mean, I went to the hospital once, but I just had a lot of bad loads because I wasn't I wasn't sleeping. Well. I was out all night. I was just I was traveling every weekend to different countries. Like it was probably the craziest way to start my day. Diabetes journey.
Scott Benner 35:01
You think you were honeymooning? I've been meaning to ask you.
Erin 35:04
Yes. And that was what was really hard is like at one point, I was in Rome and I, my Lantis was down to like one unit a day. Because I, when I first got diagnosed, I was at 10. And it just kind of, we just kind of kept lowering it because I was just having a lot of lows. And I was at one. And I was just because we're walking so much. I probably had like, like, Can you can you hear me now?
Scott Benner 35:35
I lost you. You are walking so much. You said.
Erin 35:38
Yeah. So we're like, we're just walking so much that I was having food snacks, like every probably like 20 minutes and continue to go out. Because we were just walking and I was honeymooning. And yeah, that's, I really wish I put I tried to get let them get me get pumped to go. But they wouldn't let me which I get but like the flexibility, like a pump would have been really, really helpful. Just with like the lifestyle I was living over there.
Scott Benner 36:09
Yeah. No 100%, it would have helped you because you could have just like done Temp Basal, and stuff like that, that would have really probably limited your low blood sugars. And yeah, and you're doing all this walking. But even probably the amount of basil that you had set up before you left was for a much more sedentary lifestyle, right, reasonably speaking. And then suddenly, you're walking around everywhere. And Did you know Did you know? To decrease your Basal you didn't know that.
Erin 36:35
I knew that. And my doctor, like I had his cell phone number. So like, I was calling him constantly. And like when I had my low at the hospital, my mom called him and like, we forgot that it was the time change. So it was like three in the morning for him. But he woke up and his wife spoke Spanish. So his wife wakes up and it's like, on the phone with all the doctors like there. He's amazing. But But yeah, so I knew to like lower and stuff. But it was just hard because once you take it in the morning, like you know, you can't like change it. And so like I had other times like there was another time I was in Italy. And I had had a bad low on the plane. And I had overcorrected because I was just freaking out. And then so I overcorrected. So then I like rage Bolus. And then I was in like the middle of a train station, laying on the ground, like shaking so low, and my friend had to go, like, run get me orange juice was like pouring it down my throat. And I continue to be well like, that whole day. And I couldn't like turn off my basil. You know, like, I had taken it in the morning. And I couldn't like, take it away. And so it was so scary to be like, it's still in my body like I want it gone.
Scott Benner 37:48
Yeah, no, I know the feeling. As soon as somebody explained to me how an insulin pumps worked. I was the my first my very first thought was, oh, I'd be in control of the Basal insulin that Yeah, yeah, that was yeah, that was my first thought back then. Hey, shaking up the train station. Do you think that was a seizure? or No?
Erin 38:05
No, I was like, I like I get really bad shakes. And I get low. Like, that's one of my symptoms. It's like shaky, sweaty, it wasn't a seizure. I was only like, probably 40. But like, again, like I had partied I had partied all night, I woke up hungover, took a plane was on a plane for two hours to like Milan, like I was trying, you know, to travel all of it together, was just like creating these like, horrible circumstances for lows.
Scott Benner 38:35
Can I ask you it during this period? Which wasn't that long ago? Right?
Erin 38:40
Yeah, I got home in May. It's August now.
Scott Benner 38:43
Alright, so we're only talking about the story from three or four months ago. So during that period of travel, and did it ever, like hit you? Like, maybe I should just eliminate one of these troubling scenarios from my life to try to make this a little easier? Or did you more think this is what I want to do? This is what I would be doing if I didn't have diabetes, and I'm going to do it.
Erin 39:06
Yeah, after the SEC, the low in that train station, which was more near the end of my trip. I definitely didn't drink for a few nights. Because I was like, I don't need to be messing with this. But at the same time, when we were going out, I wanted to be with my friend like, not that I could be there with not drinking, like I wanted to go to these clubs, and I wanted to have fun. And I was in that mindset of like, I don't want to let this like take away from it. But there were times where I'm like, What am I doing to myself because I was destroying my body. 100% like it was just not good.
Scott Benner 39:43
Did you ever have you ever have the thought like this could kill me?
Erin 39:48
Um, I mean, when I after that I passed out I was like, okay, yeah, this is like, more serious than I've been thinking. But like it was always I'd freak out. out about it, and then I didn't buy that night, the next night or the next time you're going out, I was like, I'll be fine. And for the most part it was, but
Scott Benner 40:07
yeah, are you? Are you just gonna use the phrase because I don't know what else to say, but are you better at diabetes now than you were even three months ago
Erin 40:17
100%. But I do think as much as I, like, wish I had a pump, I do think being on MDI and having to make all these adjustments and having to learn those things has made me better on my pump, because I think if I just went on the pump, I would have been like, Oh, this is gonna solve all my problems, type of thing. And I think like having to, like go through the motions and like, make do things like helped me just, like learn about how my body like reacted insulin and like, that kind of stuff. So I think it was probably good that I was on MDI, but like, coming home was a breeze. I mean, I'm back, I'm in a routine, and also abroad, like abroad, I didn't carb count one thing when I was there, you know, there's, there's no such thing as car counting there. So everything was a guesstimate. And so coming back, being able to carb count on a schedule, sleeping, not really drinking, like, and getting my pump was amazing.
Scott Benner 41:13
Are you have you at all in the last 38 minutes wondered? I, I, I've tried to put myself in the position of being like the young mother of like a five year old that has diabetes listening to this. They must be listening to you like, Oh, God, Oh, God. Oh, God. I don't
Erin 41:30
know. Yeah, I know.
Scott Benner 41:34
It must be. Right now. They're like, oh, so she can't go to college. That's for sure.
Erin 41:40
She can't be her. I don't want I don't want my
Scott Benner 41:43
Well, not that you are. You just the situation is? Yeah. Because, you know, I remember on my son's intake day when he was a freshman, and oddly, he's now graduated. But there were these young parents clearly all like, you know, a large portion of these were their first kids going into college and this group, right? And we're in this, like, seminar room with these people that work at the college. And this woman raises her hand, and she goes, does everyone drink? Like, like, he'd been like, she had been worrying about it for 20 years. You know what I mean? Yeah. Yeah. And, and the person at the podium, gave some statistics about, you know, how many people drink at college versus how many never do How much do you know sometimes, etc. And it was interesting that the numbers were fairly 5050. Like, some people drink and some people don't? Yeah, yeah, I would do that. Yeah. Right. And, and it did not comfort that lady at all. She's like, 5050, I was like, yeah, you've got a coin flip chance of what you're asking about right now. But at the same time, I don't know where I felt like everyone, I'm such a weird person to ask about it. Because you've probably drank more in the last month I've had my entire life. Yeah, so I don't know, like I but at the same time, I don't feel like I don't feel like I'm sitting here thinking like, oh, Aaron's doing the wrong thing. Like, I think you're doing what you mean to be doing and, and it's, um, it's a different choice than I would make, but it's not. But it's not right or wrong. I think the reason that you come on and talk about it is because you got a coin flips chance of this being new. And you're going to need to know how to handle it, because the answer isn't. It's why I asked you the question earlier, the answer isn't, well, just don't do it then. Because you're either a person who is going to Yeah, where who isn't going to? Yeah, right. 100% Yeah. So when you're raising a six year old with diabetes, you can't just go with Oh, I'm sure it'll work out in our favor, and the kid won't drink when they get to school. So how do you manage it now? Like now that you know a little better what you're doing? How are you stopping these problems from happening? Or are you not having luck? Still?
Erin 43:58
I'm definitely having more luck. I mean, just having the pump like I was setting Temp Basal right after I was done drinking, which completely eliminate those morning lows. And I was just able to be more mindful about like eating snacks and stuff. Like when I got home and whatnot. And now I'm on Omnipod five and so that I don't really even change my you know, it automates it. And I haven't had a low from drinking since I've been on it. So yeah,
Scott Benner 44:28
do tell Aaron How long have you been around the past five?
Erin 44:32
I think like three weeks now. For you for? Yeah,
Scott Benner 44:38
this is the whole marketing idea for Omni pod. If they're listening on the pod five for college drunks. That's, that's a nice poster, right? That's a good. Listen, you find a nicer more professional way of saying it but you get what I'm getting at. So the algorithm is stopping you from getting Low when you're drinking and are you not putting any effort into it?
Erin 45:04
Yeah, not at all. I mean, it because when I was on dash, I was lowering my Basal. Every time I was done drinking for like, honestly, like 12 hours because I listened to like the pro tip with Jenny where she was like, decrease it I forget exactly what you said, but per drink, you know, for every amount of hours and so I was doing that and now I don't even touch it
Scott Benner 45:28
was that was what Jenny brought up from the drinking episode. Was that working?
Erin 45:33
Yeah, that was really helpful. Wow. Yeah. See, that's
Scott Benner 45:35
the kind of stuff I'm a fan of talk. Obviously. You listen to the podcast you must write.
Erin 45:41
Yeah, I, I listened to the first pro tip. Like, the second day I was diagnosed. No kidding. Did
Unknown Speaker 45:48
your doctor tell you about it?
Erin 45:50
It was my mom's friend. She is her who told us about podcasts and the doctors this and then she was like, go do the protests. There's about like, it's like the starting over whatever. recently diagnosed. Yeah. And so I'm, I'm I listen to that. And I can't say I've listened to all the episodes. But I do listen, quite frequently.
Scott Benner 46:09
I appreciate that. Now, it would be very, I think I put up episode 732 today. So if you listened to all of them and went to college, and we're both aerated as much as you are, I would wonder where you were getting all this time from? Okay, so anyway, my point was going to be that this stuff gets talked about sometimes in like isolated corners of diabetes, you know, the diabetes world. But mainstream, like, outlets don't talk about stuff like this. And it's why it's why I focus on doing it as much as I do. It's interesting, too, because the prote holding up the pro tip episodes against the after dark episodes is interesting. More people listen to the protests, like like, just tell me how it works. Like tell me how they like that kind of stuff. How do I do it? What do I do? But some of the most completed episodes? Are they after dark, like people who listen just like from when it starts till the second it ends? Yeah. Because I think that it's either a thing that is happening to you something that exists in your life, or it's an oddity to you, and you and you're interested in like, like, oh, I don't like I, you know, I don't have bipolar disorder. But let me listen to a person who has diabetes talk about their bipolar, like, I think they find it incredibly interesting. And so I think, yeah, never enough content like this, honestly.
Erin 47:41
Yeah. And because after I listened to a few protests I, I forget, which I found first, but it was, I think it was the after dark about the girl talking about like, dating with diabetes, and then it listen to the guy won. And then there was another one about drinking too. And I loved all those like, like you're saying it was just like relatable stuff. And that's kind of why like, always wanted to come on here. I just like was like, I would love to, for someone going into college, or who's getting diagnosed in college, just be able to hear someone who is partying and is going out and like, like, okay, like, I will be okay. And if that's what I want to do, like, I can do it, you know, like, it is possible to still be a partier in college and have diabetes.
Scott Benner 48:22
Well, you have to know what to do. It is not a thing that you can just take one faith and be like, Oh, I'm just going to hope this works out, like hoping diabetes ever said, Yeah, hoping hoping type one diabetes just works out is a bad idea to begin with. But then you add being either inebriated, like, not able to make good decisions, or being unconscious to it. Yeah, hope is, you know, a person told me I know, the person listens to the podcast, they'll also be very vague, but happened to bump into somebody one day, like a total and complete stranger. And we were kind of at the same place for like, a half an hour. And she was there watching her kid who was too old to be kind of like, watched by her by their parents. And I happened to be there because I was, I just gotten there to pick my my son up. And so this is very vague, and I'm trying to keep it very vague. So it's not a place where parents usually watch their children, but she was watching him and I was like, you know, you've listened to podcasts. Like I talked to her for comments, and my started getting the best man, like, why are you like, here? And she's like, well, he has type one diabetes. And like, she was just kind of like, I think she was worried, right? And then told me a story about fairly recently in college, where the kid had become completely unconscious, but with high blood sugars, right, okay, and was like vomiting and in decay and like, you know, like just not able to take care of themselves. And then you find yourself in a very strange position where the people you're hoping are going to help you are Other drunk people your age? Yeah. Yeah. Right. Who are not like classically the most reliable subset of, of society drunk kids? Yeah, right. You don't you don't you don't go find a 20 year old and be like, hey, you've drink it. You've drank a fifth of vodka in the last three hours, would you paint my house? Like you don't even let alone? Can you give medical advice to my kid? So this poor kid was just passed out? As was everyone else blood sugar up, up up, the parents had to drive a great distance to go like, scoop the kid and take them to the hospital.
Erin 50:37
Oh, wow. So I would hope that if that happened to me, someone
Scott Benner 50:41
can get to the hospital, you got to check your friends very closely.
Erin 50:45
I think I think they would I think they've given I think, I hope you want
Scott Benner 50:49
to make sure you're around the right people. But my point is, is that in a scenario where this kid was going to do this thing, anyway? Wouldn't it be beneficial if he knew how to do it the best he could?
Erin 51:03
Exactly. It's like, you can't like you're saying you can't just expect someone not to do it. Like, you have to give them the tools to understand how to do it. And then they can decide if they want to engage in that activity or not. But you can't just think oh, they won't do it. Because the odds are they will and then they don't know how something like that happened.
Scott Benner 51:21
This week hit you differently. I mean, obviously we'd hit you differently than alcohol but do you manage it differently? Or do you not need I don't
Erin 51:28
really smoke like I I'll take an edible like once a month I would say and when I first got diagnosed, I took an edible and then I had a low and I was like freaking the fuck out like I was like not okay, so I didn't take edibles for a while and I've recently like taken a few but I don't I don't I just like I don't take them as much as I used to because we'd have such a strong substance where the minute you put an anxious thought in your head you're anxious and so like if I'm like thinking about my blood sugar's it just makes it not a good experience whereas if I'm like laughing and doing something else like I love it, but I think I too much in my head sometimes we're like we just doesn't isn't like a good feeling for me anymore.
Scott Benner 52:19
I have questions and of course my weight information is coming secondhand, but I've heard this before about if you have anxiety we'd either takes it away or can make it like stronger. But I've also heard the difference between smoking and and consuming can impact differently to suit doesn't sound like you smoke a lot but do you have the anxiety when you smoke
Erin 52:45
I'm probably not it's much it's just easier to take
Scott Benner 52:51
Aaron Aaron, I'm so sorry. It's easier to take edibles. Keep talking from there.
Erin 52:56
These are like edibles. Then, like smoking, just like but now I guess I could smoke whenever I wanted because I'm like older but when I was a little younger it's easier to take edibles because they don't smell and stuff.
Scott Benner 53:10
Oh, I see easier to take edibles because nobody will know there's no accoutrements, there's no odor. Yeah, just stuff. Yeah. Interesting. Has anyone ever used the word accouterments with you around weed smoking before?
Erin 53:23
I don't know what that word means? You don't know? Sidebar,
Scott Benner 53:28
this is a nice moment for you and I hold on a second, I'll get you the actual definition. Okay. I'd like to see you use this word. And in regular life, it's a it's a fancy word. But additional items of dress or equipment or other items carried or worn by a person or used for a particular activity. So like a bong would be an accoutrement of smoking. And I'm saying, accountant in loose terms, your calculator may be in a huge amount. Okay, I get it. Okay, got it. You're like I've never seen that works catch that up?
Erin 54:07
Definitely not. I don't think I could pronounce it.
Scott Benner 54:11
Do you think that? So I have one of those weird vocabularies. My son pointed this out to me the other day, he wasn't being kind when he said it. I just want to be clear about that. He's like, you use a lot of words you don't know. And I was like, that's not true. I know exactly what they are. Because how can I ask you to define them? You can't define them. I was like, well, not being able to exactly define them, and not knowing what they mean, are somehow different. And he goes, how and I was like, I don't know what it is. Because I know what a kucha might mean, it's funny, I know when to use it, but if you told me Give me a solid definition, I would pick it up
Erin 54:48
just you wouldn't. You wouldn't know how. Yeah, I get that. Yeah, I don't really have a very like high vocabulary.
Scott Benner 54:54
No, I'm like nouveau smart. You know, they mean like not really, but I get away with it. Yeah, yeah like nouveau riche. Yeah. Have you ever heard nouveau riche? Oh my god, what are you doing over there? You just smoking weed and drinking all day?
Erin 55:09
No, I'm not I profited. I just don't know a lot of words.
Scott Benner 55:15
nouveau riche is a term used usually in a derogatory way to describe those whose wealth has been acquired within their own generation. Okay, new money is another way of okay. Yeah, I'm sort of like, I'm sort of like new education. Didn't I mean? Yeah, I don't come from a long line of well educated. Well brought up people. Okay, but I've kind of like rushed into it. In my lifetime. Yeah. Yeah, I guess. What are we gonna call your episode? We're not done yet. But I think it's just gonna be after dark. When in Rome. That might be one. Yeah. Yeah. So Alright, so let's talk about how you can not kill yourself. Because it seems like you're well on your way. No, that's shaking and sweating. I'm going to tell you something. Arden's had a couple of seizures in her life. I'm gonna bet your I'm gonna bet you're 10 points away from having a seizure.
Erin 56:15
When that yeah, I wouldn't. I wouldn't doubt it. Yeah.
Scott Benner 56:17
Were you conscious and making sense? Or were you lost, like,
Erin 56:21
like, I was completely lost, like, because the first time I passed up, like I woke up pretty soon, the second time when I was on the ground, I was, you know, you're just so out of it. And I'm like, in my head, I'm gonna die. I'm gonna die on the dime and die, which obviously doesn't help anything. But
Scott Benner 56:37
did you ever like afterwards, look up at your friend and go? I can't believe you're the only thing that stood between me and death? And does that impact your friends? Your friends have like, like, that girl who ran and got, I'm assuming is the girl the person who ran and got you a juice? Were they later like, Hey, Aaron, listen, we got to stop hanging out. Like because we're where they pretty cool about it.
Erin 56:59
She like she's very traumatized by it. But it's interesting, because she, like just kind of had more of like a respect for me. And finally, like, understood how serious diabetes can actually be. Because I think a lot of people that I'm around when I say I have diabetes, it's just like, Oh, you have diabetes, but like, no one really understands, like, what could go wrong? Until you see some someone almost, you know, and so she is just like, like, now she was like, always worried about me always asking, are you okay? Like, what's your blood sugar? Because she's like, seen it firsthand. Whereas other people are so kind and like to me and like, always, like, helpful, whatever. But they just don't like know how bad it can get if that makes sense.
Scott Benner 57:45
Right? Yeah. So they're being kind of like surface about Yeah. Oh, that's terrible. I'm so sorry. And then they probably they probably walk away and go. Alright, is diabetes, because they don't know what it means. And exactly right. But this girl got to see like, Hey, I someone hand me a juice, I'm gonna go port in the face of my friend before she drops that in this train station. And yeah, that'll that'll make you understand it pretty quick. Exactly. Yeah, I agree. By the way, I've seen a seizure. And if you haven't seen one, it's different. So you know, it's a different one. Because otherwise, it's all academic, right up until then, like, oh, I don't want to get too low. Because if I get too low, I might shake or sweat or I could even have a seizure. But if it's ever happened to you, you just sort of like, you know, but that never happens until the does. And then. Yeah, it's like saying, I don't need to wear a seatbelt. I drive every day and never have an accident. You're not wearing a seatbelt for the 29 days, you don't have an accident, you're wearing it for the one day when you know, you drive into a pole. That's the day you know, and that's the day you need people to understand around you how to help you. So
Erin 58:56
yeah, and I think I am like, happy is definitely not the right word. But I am like happy that I had such a bad low early on in my diabetes, because it has made me understand because I think if I had gone through this experience, with out anything bad happening, I'd be so much more careless than I am right now. And that would lead to play something even worse.
Scott Benner 59:19
You know, it's funny, it's twice you've said that you needed something bad had to happen. So you would know to take it seriously. I think it's I think it's your age, which is not a dig but that just is how it goes. Can Can we veer off a little bit here and if you if you don't want to talk about it, I'm cognizant of the fact that I'm 30 years older than you and it could be creepy, but um, were you sexually active before you were diagnosed? Yes, okay. I just heard you do the math in your head. You're like my parents are gonna hear this. Where's this gonna go? Like the whole thing but I appreciate you answering. How has that changed with diabetes or has it not?
Erin 59:59
Um, Yeah, I mean, I think in the beginning, in the beginning, I was kind of with a, it was like my, my ex boyfriend was like talking to you again. I was with when I got diagnosed and he was just like, didn't know what to do with himself when I was diagnosed with, which was like such a turn off and like, we went our separate ways. And then I started like, there'd be guys who the interested in me and who would find out have diabetes and try and use it as like a flirting type of thing. And because like, I always wear my Apple Watch and so, like, I can check my blood sugar's like quicker than grabbed my phone and guys would be like, oh, like, Are you doing okay? Like, let me see, you're not like, you know, like trying to make it like a flirting thing, which was kind of funny. And like, I didn't see that coming. But then there's also been times when I'm out and like, I'll be talking to a guy and then like, he's like, what's up? What's in your arm? What's wrong? Like, what's wrong with you? And I'm like, All right, I'm done with you. And I move on. So it's been interesting.
Scott Benner 1:00:59
But these dastardly boys, Aaron. Now I'm using now I'm using words just for fun, but they that would look at you and go, Hey, I'll pretend to care about Aaron's health, so I can see her butt cheeks. That's wrong. Okay, he really
Erin 1:01:18
find the moment I'm like, oh, there's they care about me. So nice. Yeah. Don't
Scott Benner 1:01:24
Oh, my God, these boys are gonna drive me to the other side. That's for sure. That was seriously because Who? Who? That's, I mean, listen, I get at that age. You're limited with your with everything, like your knowledge of how to talk to people and everything. But I don't know if you got to you got to know that's a slimy thing to say to do. Right? Yeah. Oh, I see. You broke your leg. Yeah, I did. Oh, my God. Is this you're in? Yeah, this is what you're gonna do? I don't know. I don't know. I'm not okay with this. I want you. I want you out of college.
Erin 1:02:04
I have one more year. Okay.
Scott Benner 1:02:06
Well, then, but then the grad program. Yeah, but that
Erin 1:02:09
won't be like it's like, crazy and I won't be doing crazy things I'll be studying and
Scott Benner 1:02:17
all that. Oh. What are you talking about? Oh, like
Erin 1:02:20
all my friends are gonna be like, like, I don't really have any close friends who are going to be in the program with me. At least I know of yet. So we'll see though.
Scott Benner 1:02:28
Aaron. This is either the first time you've lied to me yourself. I'm not sure. You think you're gonna magically stop drinking when you're undergrads?
Erin 1:02:37
No, I didn't mean like that. I just mean like, I'm not going to be out. Thursday through Saturday. like talking to fraternity boys. You were trying to get my pants.
Scott Benner 1:02:47
Yeah, but now you're gonna be talking to grown men are gonna be trying to give you a coke. You know this, right?
Erin 1:02:55
No, that's not gonna happen. I mean, there's a ton of coke at school, but I've never done that. That's great
Scott Benner 1:03:00
stories. Aaron. I hear it's like water. Right? cocaine. Cocaine is like tissues. They're in every room.
Erin 1:03:08
I've that's where I draw the line. That's where I draw the line. Like,
Scott Benner 1:03:11
it's you. Your parents are gonna be so proud when they hear about this. Have you done any other stuff? Besides we'd ever? No, no. If I said to you, heroin, you'd go? No. wouldn't do that. Never. Okay. I'm just checking. I want to make sure you're okay. i So far I see you defending yourself and one girl on a train station. I need somebody else on your side. So I'm going to be on your side for a minute. About mushrooms. You had to have done mushrooms. You live in Colorado. You Brian, you broke up.
Erin 1:03:48
All my friends and all my friends did shrimps. Oh, sorry.
Scott Benner 1:03:51
Yeah, I can but mushrooms.
Erin 1:03:54
As I was saying, No, I've never done them. And I was in Amsterdam, where the legal and all my friends did them. But I was too scared to do that.
Scott Benner 1:04:01
Do you have diabetes at that time?
Erin 1:04:04
Yeah. Okay. Did that happen? Yeah. I just Yeah, I was I didn't know how it would affect it.
Scott Benner 1:04:10
Yeah, I mean, it would make you look inwards at your ego and it would flip inside on itself. And you would either become very aware of yourself or you would become like a self obsessed. bore. I think that's pretty much the two ways that ends up going from what I've understood. Okay, so you have I'm just I have to tell you like the cocaine thing. Being so prevalent now is like, especially with fentanyl.
Erin 1:04:36
Yeah, that sounds insane. It's really scary. Yeah. Being such
Scott Benner 1:04:39
a problem. Do you know anybody who's Odede? Not personally. Okay. Stories from school.
Erin 1:04:47
But there have been odd at my school. Yeah, yeah. Yeah. Yeah, it's freaky.
Scott Benner 1:04:52
Of course it is. Friend of my son's died this year. So Wow, I'm so sorry. Yeah, it was terrible as a boy you knew from high school. And I don't think they were close anymore. But certainly don't expect to hear that 22 year old who lives in your town is is no longer Yeah. Because of fentanyl. You know, yeah. It's alright. So be careful. You know, there's a whole episode about testing your drugs, right? You know about that? No, I didn't know that. This girl came on, she's terrific. She's probably your age when she did it. She's like, I just want everybody to test her drugs and be safe. And during the whole thing, she was like, I don't do hard drugs. I just do this, this this. And I was like, right. And she and I was like, I forget how the conversation went. But it's one of the moments of 700 and some episodes that sticks out in my head. Because I was like, so no, no hard drugs, because no will cocaine. And I was really not measuring that as a hard drug anymore. I was like, that's,
Erin 1:05:47
like, that's a hard drug.
Scott Benner 1:05:50
Right? So, all right. Can you explain to me, you're not going to be able to this is a stupid question.
Erin 1:05:58
I ask it.
Scott Benner 1:06:03
I don't even know how to ask it. So I'm going to I'm going to start with a basic idea. Because this is how little I understand this. This concept. Why do people drink?
Erin 1:06:16
Um, it just like, when you're going out and like, with people, it heightens like, your emotions you like laugh more you your worksite like, it just you just want to be like partying and out and having fun all night. I guess. I see it.
Scott Benner 1:06:35
When you say partying? What is the definition of that to you?
Erin 1:06:41
Like, just like going out and like being with people, like doing thing
Scott Benner 1:06:47
with people and
Erin 1:06:49
I have to, I have to define partying. I know what you're saying, You know what? You know what these words mean. But when you have to define it, this is what I'm experiencing.
Scott Benner 1:06:58
Okay. I appreciate that. And it's a it's it's both a weird, simple and deep question, in my opinion. So I wasn't sure what you would say. Like when you say that, my and not just me now, not just me. 50 years old. But if you would have said to me when I was 20. Hey, we're gonna go out and go partying, I'd be like, Oh, no, I'm not, like, be like, Oh, God, I am definitely not doing that. I don't want to see your stupid drunk ass talking. I don't want to hear your dumb thoughts. I don't want to see you pass down on the sofa. I don't want to feel responsible for you. If you can't handle yourself, like, like I would. That's how it would strike me if you said it to me. And if I said it to you, you'd be like, oh, yeah, let's do it. Yeah. Yeah, I don't know. I'm not saying what's right or wrong. It's just one of those
Erin 1:07:47
things. Yeah, it's just one of those things.
Scott Benner 1:07:50
I genuinely don't make a judgement about it. I just don't understand it.
Erin 1:07:54
Yeah, I guess. Yeah, I don't really understand it myself. To be honest. Yeah.
Scott Benner 1:07:58
Like the the episode I put up today guys skydives. And I'm like my brains going, I don't understand. You jumping out of a plane for fun? Why? I can't I can't I can't wrap my head around it in a million years. If you said to me, Scott, we're gonna go out on a plane and skydive. It's gonna be great. I'm gonna No, I'm not doing that. I don't I don't want to do that. Because who knows why, but you know, I don't know why I'm saying no to it. I just No, no. I just I would not do that. And so I don't know. That's interesting. Even like weed. I have no trouble with weed and I've never done it.
Erin 1:08:35
Yeah, I don't know. It. Just it just happened. That Yes.
Scott Benner 1:08:38
happened. So let's go over some of the fallacies that people might think of. Did you have a happy childhood? Yes, yes. Do you love your parents? You think they love you? Yes. Okay. Do you feel incomplete? Or at all? No, no. Do you feel like misunderstood? No. Okay. Do you feel like you fit in with people when you're not Hi? Yes, okay.
Erin 1:09:07
I feel like I fit in last
Scott Benner 1:09:11
describe what kind of a drunk you are.
Erin 1:09:15
I'm a fun. I'm very happy, drunk. Like, I like like making jokes. Like, I think I'm really funny, but I might not be very funny to other people. I like I like to just like, I love dancing even though I'm really bad at dancing, but like, that's always a good time. I don't know how
Scott Benner 1:09:39
you're doing fine. If you weren't partying what would you do with your free time?
Erin 1:09:47
Like go to dinner goes shopping, hanging out with my dog may still do all these things like you're asking like my whole life is spent.
Scott Benner 1:09:54
I'm not acting like this. Substantive. It's just what we're talking about.
Erin 1:09:59
I'm just I'm just kidding.
Scott Benner 1:10:00
I don't imagine I don't imagine you aren't. But does regular life feel boring? No, no, no interest. I
Erin 1:10:07
said, like, I usually will drink like, Thursday nights. And then like, Saturday during the days, and sometimes Fridays, but like, usually Fridays, I am too tired. like I usually do two nights a week. So it's not like I'm, like going crazy. No,
Scott Benner 1:10:23
no, I mean, I actually don't think you are. I'm just, I'm asking my questions. Now, it's my question, how many percentage wise, how many of the kids you go to college with do you think suffer from some sort of depression or anxiety?
Erin 1:10:40
90% I mean, more towards anxiety, I think anxieties become a part of too many people these days. So I would say, like, I had just with the pressures from parents in school, and there's always something that you're supposed to be doing or you didn't do, right. Or, like, why aren't you doing like, or the anxiety of people? Like, why aren't you in a relationship? Like there's just there's always something that could be causing you to feel that way? I say,
Scott Benner 1:11:10
feel like judged constantly. Yeah, yeah, pressure about multiple facets of your life. Yeah. And there's no ability to just be like, I don't care.
Erin 1:11:22
I think the race and I have friends who are like that, and I am starting to try and become that person, like I've always ever from anxiety. And I started seeing a therapist, like, two years ago now, who's completely changed my life. And I would say I'm a lot more on that. I don't care side, I'm gonna do what I want. But it's a really hard place to get you when you have those feelings.
Scott Benner 1:11:52
I have a question that fell out of my head because a different question popped in my head. Dammit, I heard is it possible? There's only room for one thought at a time my brain? Possible? Maybe? Oh, God, that would be terrible. If that was true. Anxiety? I'll find it hold on a second. Oh, perspective. Do you think perspective and expectations drive anxiety? Because I do. I think that I use myself as an example, I grew up really broke. I didn't have any expectations for success. I didn't think I was gonna go to college. I didn't think I was going to learn anything. I didn't think I was going to make any money. I didn't think I was going to be particularly special in any way or do anything wonderful in the world. I didn't have any, any expectations about any of that. So no matter what happened to me, I was always like, Yeah, well, that makes sense. And but then now, everyone, right? Like if you if you come from a household that even has a median income, someone expects you to go to college. 100%. Right. Yeah. And then you're gonna go, you're gonna leave with that most most people are going to leave with that. Although not you, because your parents were fancy enough to move across the country to hang out with you. So I'm going to assume they're doing okay. And am I right, Aaron? Did I figure that up? Yeah, you are correct. Thank you. So you're not paying for school? Is that right? Yes. All right. So there's one pressure lifted, but you still have? Do people like me? Am I dateable? Am I gonna meet a person? Am I going to figure out this degree? Is this really what I want to do? Can I get a job? And then on top of that, if your parents are making a handsome income, then your expectations for how much you make coming out of school are probably raised as well.
Erin 1:13:44
Yeah, yeah. Yeah, it's definitely like I would say,
Scott Benner 1:13:49
say that again. I'm sorry.
Erin 1:13:50
Dr. A huge part of anxiety. And I would say expectations do drop a huge part of anxiety because the Yeah, the world, the world that we live in now. It's just you're always expected of something and yeah, it can. It can be hard at times for sure.
Scott Benner 1:14:04
Set the bar low. Aaron. That's my motto. Okay. Anything that goes right seems like a major win.
Erin 1:14:11
Yeah, I feel like I don't. I'm like past that point of setting the bar low. Like I'm almost done with it. I don't know how to say that. Like, I'm not a kid anymore, you know?
Scott Benner 1:14:21
Yeah, no, I hear you. I don't know that. I don't know that. I mean it exactly the way you're saying it. I just mean Yeah, yeah. Um, what are the Beatles say? Aren't you know, the Beatles? I know the Beatles. So this is a this is an interesting moment. Because if you don't listen to The Beatles, you'd be like, I don't know what that's an old listen to The Beatles. Okay. I think let it be is. That's a good one. Yeah. Might be my motto sometimes. Right? Yes. It's a good one. Yeah, whatever happens.
Erin 1:14:49
That's that's what I've been learning. And honestly, I think getting diabetes has like, helped me in a way which I wouldn't have thought but like it It's just, it's like, it's caused anxiety to increase around lows. But in all the parts of my life, my anxiety has decreased immensely, I would say.
Scott Benner 1:15:12
Do you think if? If I snap my fingers, right, and you and you opened your eyes, and you were graduated, had a job with an income you were happy with? And were with a boy that you liked? Who liked you back equally? Do you think most of your anxiety would disappear?
Erin 1:15:34
Yes, okay. Yes. All right. Yeah, there's, it's the anxiety of the future to like, yeah, am I going to find a husband? Am I going to get married? Am I going to get a job? Am I going to do this? Like, that's my biggest thing that I have, like, I just have to live in the moment and not be so worried about the future,
Scott Benner 1:15:56
the unknown gets a hold of you. Yeah. You know, the ship after you attain these things that at the moment you think of as the things that your future will hold? That new stuff will fill in that that vacuum, right, you'll start wondering about, like, buying a home or having a baby? Or is your baby going to have diabetes? Like, like, you're going to have like this, this doesn't stop, but it actually, sorry, I can't believe I'm gonna say this. It gets worse as you get older. So, yeah, I can see that because your concerns will start becoming about not just yourself, but other people. Yeah. You know, and then you're kind of inextricably, like connected to these successes and failures of other people. Did I use that word right now? I'm in my own head about this. Alright, hold on a second. What? Where did you even say, give me a second. All right, I said inextricably, in a way that is impossible to get to. I used it right God damn, Aaron, I am on a payroll today. Where's my son? I want him in here. Right now. It's like atomic himself. Because I use good words, I just don't 100% know what they are. So thank you, you know, he and you are the same age. Oh, really, he's like, he's like five minutes older than you are so inextricably, in a way that is impossible to disentangle or separate. So you become inextricably attached to other people whose lives you you care about as well, and whose health and outcomes and their anxiety and all that stuff. So then, by loving this, this is this is not me talking to you out of like caring about people. But when you start caring about other people, their problems weigh on you almost more than your problems, though. You know, what? Why the hell am I not drinking? I think you might have just talked me into it.
Erin 1:17:59
Yeah, you're making the future sound pretty, pretty, not happy.
Scott Benner 1:18:04
is happy? It's just I know, it's not an unhappiness. It's um it's just there's more expectations to manage. Yeah, I think that's all what it is, like, you know, why is it upsetting that your kid has diabetes? Because you didn't expect it to happen? Why is it upsetting that you have it? This is not something you expected to happen if, if growing up every, I don't know, six months, someone would have said to you Hey, Aaron, by the way, when you're 21, you're going to get type one diabetes, you have to start using insulin, then the day it happened, you would have been like, oh, yeah, I expect this. Yeah. Right. So I'm almost talking about this, because I don't think there's anything wrong with it. I don't think it's a bad thing, that you're going to love somebody so much that you're going to care about them more than you care about yourself and that they're and that you may rise and fall with their experiences as well. I think if you expect it, then it's manageable. But if you just look up one day and think I thought life was going to be perfect, and it's not then it feels terrible. Yeah, right. Yeah. And that's true. That's the expectation we give kids. It's going to work out for ya. You earn you're gonna be terrific. You're such a pretty girl. You're so smart. You're gonna get a job doing whatever you want. And the guy is going to be lucky to be with you earn. Yeah, right. And then you bump into a guy at school. And he's like, what's that diabetes get away from and you're like, Oh, I thought he was gonna be lucky to be with me. What the hell? Yeah, and then it hurts. All right, Aaron. Listen, life's easy. You'll figure it out in the next like, six or seven years. Don't worry. You're sound smart. I think you're gonna do it.
Erin 1:19:46
Yeah, we'll see. I think I can do it. I think I can do it too.
Scott Benner 1:19:49
Do you really? You have like, you have like cope. Uh huh. Yeah. How much does the therapist help you with that?
Erin 1:20:00
it sorry, say that again?
Scott Benner 1:20:00
How much has the therapist helped you be hopeful? A lot?
Erin 1:20:05
Yeah. Yeah, that's like, my like, I have changed a lot in the past two years. And I think about it a lot. If I would have gotten diabetes at that time, like, when I was a freshman in college, like, I don't think I could have handled it even like, yeah, I don't think I could have handled it. I don't know what I was in such a anxious, like, cared so much about what everyone thought like, if I had to wear a Dexcom on my arm out to a party, I wouldn't have gone out. Like, that's where I was in my life. And now I'm like, I love wearing my devices. And I, I like people staring at them and makes me feel like that about myself in a weird way. But like, if it if I would have gotten diagnosed two years ago, it would have been a completely different thing, I think.
Scott Benner 1:20:50
Yeah, why did you initially go to the therapist?
Erin 1:20:56
Um, I always just, I, the thing that was so funny about me is I would get anxious about like, the smallest things, and I was going to get my eyebrows waxed at this place. And I couldn't find a parking spot. And I call my mom, like, screaming, bawling crying about how I can't find a place to park. And how am I supposed to call like, I can't call them and ask them where the parking because my mom's like, there's a parking lot. But I didn't know where it was. And the thought of like, having to like call someone and tell them that, like I couldn't find a place to park made me like literally almost passed out from panic. My mom was like, We need to find you someone. And I was like, You're right. Like this is getting out of hand. And so like that, then I started seeing her and yeah,
Scott Benner 1:21:45
I think more recent generations live so virtually, that when they go into like the real like, IRL world, that everything seems crazy. You know, like, like for me, you know, growing up, I mean, think about it. When you were 16 is four years ago, five years ago, I was 1634 years ago. And no one even i No one even fed me. No one made sure I was alive. Really. Like I like parenting back then was just a series of like you, you you make a place where they're safe and inside, and there's food available. And you yell at them to do their homework and you yell at them to take a bath. Like that was the interaction I got from my parents mainly. And, and if I screwed with my brothers, somebody would smack me. It's pretty much it. Okay, and so, you get up in the morning, you'd be like, Alright, I gotta eat. And then you'd go feed yourself. And then you'd be like, I gotta put clothes on, then you'd put clothes on? And then you'd be like, well, it's summertime. I don't know what to do. I'll go find other people and see what they're doing. And then we would go do things by ourselves and be gone. I know it sounds like a story people tell or it's a meme at this point. But I'd walk out of my house at nine o'clock in the morning, I'd show back up at one or two being like, hey, food, I'd grabbed some the leave again. And we didn't come home till 5am Yeah, that's my mom says to my parents were unaware of where I was. Like, we were like crazy. Yeah, you did not. You didn't have a day like that growing up. Yeah, no. Right. And now you're in the you're in that you're out rolling around in some fat car. Trying to get your brows wax which by the way, man, I say on and I'm not embarrassed. Look into threading.
Erin 1:23:43
I, I you get your eyebrows threaded?
Scott Benner 1:23:48
Arden and I do it together. Really? Yeah. So it's a thing she does that I used to just drive her to. And then one day I was like, he's like, do it. I was like, Okay. And now when I go there, the woman's like you too. And I'm like, Yeah, and I swiped in and I get my brows done. And I gotta be honest with you, I look better. So that's funny. Which, by the way, on the scale of one to 10 that the eyebrow threading moves me from a 2.5 to 2.9 on that scale. Because that's some great thing. But it's, um, they don't grow back as quick. The shapes nice. It's cheaper.
Erin 1:24:24
I know people who do it, but I guess I've never even looked
Scott Benner 1:24:26
into it. Yeah, they gotta be some hippies in Colorado who are doing that? Yeah, definitely. The whole place smelled like petroleum oil. And, you know, they'll be like, you want hash like they just heard my eyebrows. Okay. Yeah, so turning the hash down to so um, so yeah, so there's this like, I don't know, like, everyone. There's a big part of me that thinks you're okay. You just haven't been tested yet. And so you don't trust yourself because you're untested.
Erin 1:25:01
I yeah, I think I think that's how I was. But I think like, that's what I think like, I think diabetes has been that thing for me. Like, I think it has been a thing like testing me. And like it has been like I think, I don't know, I don't really know how to describe it.
Scott Benner 1:25:17
No, I think it's also it's really hopeful that you got in this situation with diabetes, and you were like, I'm gonna go on this trip, for example. And okay, you didn't handle it. Great. But you also, I mean, think about it. You didn't call your mom and say, I can't find that eyebrow plays. Right. You were like, I'm in Rome. Yeah. So you did like you made it there. It's a big leap real. It's a great accomplishment that you present. Yeah, the next level is to do it without shaking in a train station. But I mean, yeah. And you're getting there with that as well. So I mean, I don't know you see, much. More self assured today than you might have even been two years ago.
Erin 1:26:00
100% Yeah. The free 100%. Yeah.
Scott Benner 1:26:04
Do you still do you still do the therapist? Yeah,
Erin 1:26:07
every two weeks. I I see her. Alright. It's over zoom.
Scott Benner 1:26:11
But kind of like a management thing. Almost.
Erin 1:26:14
Yeah. And just yeah, it's just like, it's just nice to talk to someone about things. That's not your mom. That's not your friends. You know, it's just like, get things off your chest. And then I always just feel like, so light and like, All right, now I'm ready to keep going type of thing. You feel good.
Scott Benner 1:26:31
I'm sorry. I cut you off.
Erin 1:26:32
I just, it's just a good like, check in like, okay, like, I'm doing things like I'm good. Just yeah. Right.
Scott Benner 1:26:39
Do you feel like that now, after you and I talking for a while? Like, I'm just different? Yeah.
Erin 1:26:45
No, I would say it's like the same thing. Yeah.
Scott Benner 1:26:49
That's really nice. All right. What have we not talked about that? We should have talked about anything?
Erin 1:26:59
Thanks. So
Scott Benner 1:27:01
we did okay. Yeah, I
Erin 1:27:02
think so. Are
Scott Benner 1:27:03
you comfortable with how this one? Yeah. Excellent. What made you want to come on? How did you were you like in the Facebook group?
Erin 1:27:11
Yeah, I'm in the Facebook group. And ever since I've heard the podcast and like I was saying this after dark episodes. I was just like, I because I, I was just like, I would think it'd be cool to come on here. Because I knew I was studying abroad. And I was like, I feel like I'll have like a cool story. And I just like, anytime, like I am, like, down or like not feeling great about diabetes. Like I go and listen to a podcast and hear someone's story and always makes me feel better. And so like, if I could be that for someone else. I was like, that would be really cool.
Scott Benner 1:27:41
is excellent. Oh, I'm so happy to do this. Thank you. I thought you were terrific. First of all, I and you were really honest, which is probably because you're young. Like you'll probably look back on this 10 years now and be like, I probably shouldn't have said that. But that's Do you think you'll share it with your parents? Is there anything in here? They don't know.
Erin 1:28:01
Oh, yeah. Oh, that makes sense. Isn't it?
Scott Benner 1:28:03
Nice? Like it's you? They're gonna be so thrilled you didn't do coke.
Erin 1:28:10
I know. You're gonna be like, Yes, we did something, right.
Scott Benner 1:28:13
Yeah. If your parents are still listening at this point in the episode, I'd like to see an extra little gift for your next birthday. You know, for other brothers and sisters by any chance.
Erin 1:28:23
I have two older brothers.
Scott Benner 1:28:25
They probably did coke. I don't know if they need me. Do you ask them how much older are they the new?
Erin 1:28:34
Four and three years? Oh,
Scott Benner 1:28:36
you guys don't have a ton in common then. Oh, were you a close family younger?
Erin 1:28:43
When we were younger, I mean, they just were always traumatizing me and absolutely hated me because I was the annoying little sister. But now I'm very close to both of them.
Scott Benner 1:28:55
Yeah, that's excellent. Well, it's it's really simple. But yeah, I think you you sound like you're doing terrific. I know that. I don't know how that sounds at all. But I mean, you don't need my approval but I think you're doing a really good job. It sounds like you came through a lot. You're handling it really well. You're thoughtful about it. And you know boys are Aki so
Erin 1:29:15
literally Yeah, that's my next thing I need to tackle in my life. Is it the boys
Scott Benner 1:29:22
Yeah, you got it you know, you know the you know the secret right? What's the secret? You really don't know. Okay, hold on a second. Most of the guys that visually you want to be with they haven't had to develop their personalities. Why is that? Because they're handsome. Oh, because yeah, for the same reason that pretty girls can be like hi and everybody's like, Oh my god, I love how they're like didn't mean like, as Heather ever said anything interesting. Like I don't care. So the the athletes the like they the the handsome kid It's like, all that stuff. They just, it's easy. Or for them probably not realize probably like handsome guys right now like, Hey, I gotta work hard to but, but I mean like people give them a pass. And so you don't have to work on your personality. A lot of your personality has to do with your empathy and with how you see other people. And so if you've been kind of skating by there's might be skills you haven't developed yet. So you either have to get a really handsome kid early and train them yourself. Right? Yeah. Or you got to wait till they turn into a human being, which my best guess is 27 years old. And then you know, it's too long. I know. It's gonna be you're gonna be a 50 year old lady with a 10 year old kid. You can't be like that. You don't want that. Say that.
Erin 1:30:47
Don't say that.
Scott Benner 1:30:49
You want kids to?
Erin 1:30:51
Yeah, yeah. I love it. I love kids.
Scott Benner 1:30:54
I can tell talking to you that you want to be a mom. So hey, though, the woman who did the after dark drinking episode that you heard the original, and she's a mom now. Really? Yeah, she had a baby a couple of years ago. Oh, that's exciting. Yeah, it really is. Okay,
Erin 1:31:11
hopefully that'll be me.
Scott Benner 1:31:12
I have one last. Can I ask a bummer at the end? I should have. I'm so sorry. I should have done this earlier. How do you defend your body? In college as a girl when you're drinking? Like how do you? How do you? Do you guys look out for each other? Or how do you do that?
Erin 1:31:34
Yeah, I would say yeah, I mean, I'm always with like, my girlfriends. And like, I would say we're pretty conscious about that. But I also would say, at this age like and the people I hang out with, I'm mostly hanging out with the same group of guys. And like, they were not trying to do anything inappropriate to me. Like it's more like if I was going out. And I guess meeting like older men, but at my school, I haven't run into like that many situations where I'm like, having to defend myself or like in an uncomfortable situation. But I wouldn't say abroad, there were a lot of creepy people, but I would always be with my friends. And we would just literally push them away and like run away to the other side of the bar.
Scott Benner 1:32:14
So at school, you almost create like a, like a bubble of people. And then you kind of figure out who they are before you start interacting with them more. Like intimately?
Erin 1:32:25
Yes. Like I Yeah. Like I'd become friends with all the guys. And like all the guys that I've dated or been with, in college, like were my friends first, I would say
Scott Benner 1:32:35
do you do you? Do does it happen that you go to a girl and say, hey, look, I'm gonna head off with this guy. Like, check on me in a little while. Do you guys go that far?
Erin 1:32:44
Yeah. And we all can track each other. Like, I have all my friends on like, find my friends. Right? So we always like, but yeah, if someone's like, going home with one you. Like, tell somebody before and are like, yeah, like technique to make sure I'm okay, texting.
Scott Benner 1:33:02
I understand. Okay, well, that's good. I just wasn't sure like, and but but then when you get out in public, or like a bar scene or something like that, then there's more. There's older guys. And they they see You're younger than they're more aggressive.
Erin 1:33:17
Yeah, I would say so. But I were always just really good about at least being with another girl where like, nothing bad could really happen. Like we're very good about sticking together.
Scott Benner 1:33:28
overseas. Did you find it to be different?
Erin 1:33:32
I mean, the men are like, so much more aggressive. And like, especially like in Italy, you're walking down the street, you're getting called Beautiful every five seconds. Like there's so much more forward than American men are. Which sometimes it's nice. They're like, Oh, you're so pretty. Oh, this and when I go home, like you don't get the time of day from anyone. It's like, oh, you've diabetes.
Scott Benner 1:33:55
So do you think it was because they didn't know you? Or do you think it's like that culturally, they're not scared to talk to people in a way that they think somebody else might find objectionable?
Erin 1:34:07
I think it's a little bit of both. I think the culture it's more accepted. And I think them not telling us they're kind of like, well, wouldn't give me whenever I see these girls again. Let's say whatever we want them.
Scott Benner 1:34:17
Yeah. And the cat calls were mostly reasonable. Like were they like, Hey, you're beautiful or Hey, beautiful, not like stuff where you're like, Oh, God, that sounds like violent. Like nothing. Yeah,
Erin 1:34:31
it was always just You're so beautiful. Are these gorgeous girls like that type of thing?
Scott Benner 1:34:36
Yeah. Did you think about it ever. Did you like that as a handsome Italian boy? I'll never see again. Why don't I walk over there?
Erin 1:34:42
A lot of times they're like, like, a lot older. I'm not attracted to them at all. Oh, I
Scott Benner 1:34:50
see. Oh, I thought it was yeah, like on your on your level? No,
Erin 1:34:53
it's like, at least in like late 30s and an older Yes. There's a little bit more like,
Scott Benner 1:35:01
you're actually, you know, it's interesting. You're seeing that 35 year old guys. That's his pickup line. That's why he's 35. And he's still yelling at girls because he's exactly yeah. Yeah. Because
Erin 1:35:11
that's how he's trying to find a wife. Yeah, well, you find that yelling,
Scott Benner 1:35:15
but yelling at girls on the street. Yeah, that's not how it usually works. We know that 21 year old boy who was like, So what's that Apple Watch? For? What do you find him when he's 35? I don't know. Are we doing the same way? He's
Erin 1:35:27
hopefully he's single. Yeah,
Scott Benner 1:35:28
yeah. Unless he figures it out and then tricks some poor girl into thinking he's a real person. Who knows? Yeah,
Erin 1:35:34
I could see that happening.
Scott Benner 1:35:35
Aaron, you're terrific. Thank you so much for doing this.
Erin 1:35:38
Yeah, thank you for having me. I had a blast.
Scott Benner 1:35:40
I'm glad I really am.
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#739 Bold Beginnings: Carbs
Bold Beginnings will answer the questions that most people have after a type 1 diabetes diagnosis.
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or wherever they get audio.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends and welcome to episode 739 of the Juicebox Podcast
Welcome back to the bold beginning series, today's episode with Jenny Smith and I is all about carbs. I think I'm just gonna call it carbs, carbs. Anyway, while you're listening today, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan, or becoming bold with insulin. If you're a US resident who has type one diabetes, or is the caregiver of someone with type one, please go to T one D exchange.org. Forward slash juicebox. Join the registry take the survey that survey taking part less than 10 minutes easy questions about type one diabetes, your answers help people with type one diabetes and they might help you as well go find out T one D exchange.org. Forward slash juicebox. And if you're looking for Jenny Smith, she works at integrated diabetes.com You can find her there
this episode of The Juicebox Podcast is sponsored by the Dexcom G six continuous glucose monitor. Get started today@dexcom.com forward slash Juicebox Podcast is also sponsored by Omni pod makers of the Omni pod five, learn more ami pod.com forward slash juice box the show is also sponsored by the Contour Next One blood glucose meter contour next one.com forward slash juice box and by us med get your medical supplies at us med.com forward slash juice box or by calling 888-721-1514. The podcast is also sponsored today by Ian pen from Medtronic diabetes. You can find out more about the in pen and ink pen today.com. Last but not least, the episode is sponsored by je voc hypo pen, je voc glucagon.com forward slash juicebox. Now don't worry, I'm not going to start piling up 17 ads on every episode I just had a thing this week. So instead of two longer ads, you're gonna get more shorter ads. Just this one time on this episode right here. I hope you understand I hope you'll listen it's going to be fun. I'm going to try to do them without stopping the recording. It should be crazy. I'm gonna need a stopwatch to Anyway, I'll see if the ads we'll see how I can do with this. And to the advertisers. I'm sorry, I didn't clear this with you. But things come up. You know what I mean? Pico? Hello, Jennifer, how are you?
Jennifer Smith, CDE 3:05
I'm great. How are you?
Scott Benner 3:06
I am I'm doing okay, I am looking through our bowl beginnings list. We are little more than halfway through recording. And we are upon carb guidelines and impact of food. But just how the statements, questions and concerns sent in by people were categorized by our dear Isabel. So it's a bit of a long list. But I think we can get through it. Cool if we try. So there's two. There's no There's two thoughts here. Right carb guidelines like what does that mean impact of food? What does that mean? I think we're gonna see by listening to people's statements first first one out of the box. All carbs are not created equal. That comes directly from the podcast. So somebody is speaking from a perspective of having been diagnosed, listen to the podcast and looking back now thoughtfully and saying what do I wish people would have told me the beginning that all carbs aren't the same? Correct. Okay, now, you and I talked about this. It feels like constantly to the point where sometimes I'm embarrassed that I don't have other examples. When I pull up like two foods, there's two foods that pop into my head every time and I I'm always like, I should come up with different foods. That's a conversation. I'm having these. There's consistency there then, right? Yes, my brain is pulling from the same place over and over again. But you know, the basic idea here is that you're going to be told to either count your carbs and Bolus for you might be told to eat on a schedule or eat a certain amount of carbs. But no one ever explains to you that all carbs don't impact blood sugar's the same way. You're taught the number. Right right. And that is come forgetting in the beginning to people like, Oh, you just count, you know, and that's why you'll hear some people go like real, like, heavy into, like, I bought a scale, it goes down to the like, the gram, you know, like, if I if I measure this correctly, you know, that works mostly. But it's not a perfect system, right? Correct. From a different person counting carbs was a huge stressor for us. We needed easy ways to count carbs. And we needed to understand how different things would hit differently. So let's talk about that a little bit. What do you think, is the benefit of telling people that and what do you think the problem is with telling people that
Jennifer Smith, CDE 5:43
I think initially the benefit goes along with the first line of information, which is counting carbs, because you have to learn, many people don't read labels before they're diagnosed, right? They may look at certain things on it, but they're not really looking specifically at carbohydrates, and learning how to count the grams of carb. But I do think that along with that conversation, if you're going to show somebody and tell them how important it is to count carbohydrates, and give this medicine, that's, that could be really heavy and action based on what the what they know now about food and how the food works with their insulin, you essentially should be telling them or giving a baseline list of these foods are slower, these foods act a little faster, these foods act really, really fast. They may all have the same carb amount, based on portion. But they may have a very different onset of action in terms of what you see happen to your blood sugar. So I think, a simplified chart, not only for carb counting, which is a really basic easy concept, for the most part. Moving into that though, the bigger discussion should be about how those carbs could show up differently in terms of your CGM trend, especially or even fingerstick values if you're doing enough of them, because you don't have a CGM yet. And I think, you know, taking that one step further, if, if you do have a really good educator, they should really sit down with you. And they should ask you what, what are you eating, not give you a random list, and you maybe eat three foods out of the 50 that are on it. And you say, well, this wasn't very helpful. Sitting down and giving them what you eat or what your child eats and getting feedback on. What should I expect of these foods? Do
Scott Benner 7:42
you think that sometimes when clinicians give lists of foods, they see it as an opportunity to change your eating habits to better things? So they write stuff so the list consists of like broccoli, and you know, things that they're like, I'm pretty sure people don't eat enough broccoli. So we'll put there's one that you say all the time that I stopped myself from laughing constantly. Quinoa. No one eats Kean rocket Jenny, just you and four other people. Right? My kids like, Alright, listen, but you know what I'm saying? Like they think sometimes they give you the list they wish you ate not the list you actually ate. Right, right. And
Jennifer Smith, CDE 8:21
which is, it is unfortunate, I would say, I don't know, I would have to ask honestly, like how many people were really given this random list of stuff that looked like it was supposed to be healthier, but they never really ate versus just the typical list of carb counts for foods. That's like a general list, right? The 15 gram per portion kind of list. And I can tell you those lists from when I was a kid are there there. Many of them are not like great foods, many of them are
Scott Benner 8:54
processed. I just find myself wondering how many nurse practitioners who on a set on a on a Saturday morning hungover eaten honey smacks would never tell you how to Bolus for honey snacks. So because it seems like you'd be saying, hey, it's fine to eat a Twinkie. You know what he mean? Instead of saying, Look at Twinkies not great for you. There's here I could sit for 20 minutes and tell you why not eat this thing. But I think it's possible you're going to eat it. And it would be nice for you to know how to Bolus for it. And I don't think that conversation happens. But I want to know want to go back a little bit to something you were saying a minute ago about how nice it would be to explain to people, here's a list of foods that will kind of impact at this level. And here's a list that might hit a little harder. Here's a list that might hit a little quicker. Whatever it is. It made me feel like the problem with doing that. If I'm thinking about how to explain things to people, is that you're in this short doctor's visit. And now you're going to start telling them that foods not food. This food is Mike Tyson and this food is Sugar Ray Leonard and this food is You know, 150 pound guy who's only been boxing for three days? And or I don't know how so I'm trying to think like, what would you say to somebody would just say, Look, when you think about speed, there's the kind of speed that a Camry creates, there's a kind of speed that a Mustang creates, there's the kind of speed that a Tesla creates. These are all cars. But the way they generate speed is differently, I don't know how you could save to someone and explain to them, you're going to eat a baked potato. And it is going to make your blood sugar higher in the future. Right, it might make it really high, because it because of the impact that's going to have for the lasting effect it's going to have in your system, but it won't jump up in the air. Like if you took out a ring pop and just started sucking on it.
Jennifer Smith, CDE 10:46
Correct. In fact, one of the ones that I explained that way. It's grapes. I call them Sugar Bombs. I mean, they really are they are you eat them. It's why raisins are also one of the like, treatments for low blood sugar, because they impact so quickly, that they will cause a quick spike. So I that's a, it's a good way to think about kind of reaching somebody at a level that they can say, Oh, I understand that. That totally makes sense.
Scott Benner 11:16
Around this time of year, cherries come into season. Yeah. And Arden will just take a bowl of cherries. And I swear to you, I think sometimes she might take 10 or 11 units of insulin to eat a small bowl of cherries, right? It just, it's like she's having a popsicle over and over and over again. Like as she's sitting there, right? It's funny, because before diabetes, I would have thought cherries, that sounds healthy grapes, that sounds good for you. You know, like I didn't pay much attention to nutrition. Prior to diabetes. I was not raised well, in many different ways. But around food was just really broke. You know, like it was like meatloaf night you got potatoes. But that night was chicken with chicken came green beans, like we were just my mom was trying to make $70 Last week, you know what I mean? Like she didn't, she just didn't want us to die. And she didn't want us to be broke. So you know, like, so? It is, um, I don't know, like I said, kind of like circling back to it. There has to be a way right now to explain to people that more than all carbs are not created equal. Although, after doing this podcast forever, I don't know that that's not the best thing to say is that you have to be aware that these foods are going to impact differently. And you start to talk about it a second ago, that processed food is going to be more difficult to Bolus for than
Jennifer Smith, CDE 12:45
simple simple style real food. I mean, to be quite honest, it food that is real, is not broken down. It hasn't been processed through a factory someplace transformed into this dinosaur shape. You know, I mean, I use the phrase which has been well overused in on online and describing food. But if my grandma didn't know what it was, then it's probably not real food or it's probably processed and started out as food.
Scott Benner 13:24
Well, so the way the way my brain does it because it's funny you said dinosaur shaped, which it's really funny because when Cole was little, one of the first nutritional decisions I made as an adult, was if I'm gonna give the kid chicken nuggets, I'm gonna buy chicken and a bread at myself, and I'll bake it in the oven, and I'll give him nuggets. And when we first did it, you might have thought I don't know if you saw this. This video lately. Apparently, there's an aquarium overseas because of budget cuts. They had to go to a cheaper grade of mackerel for the penguins. And they hold them out and the penguins turn their heads away and won't they like won't eat them, like, like, and so that was cold when I first gave him fresh real chicken nuggets. He ate them and he was like, What is this garbage? Gold this is just a I overspent I bought chicken breast i cubed it up nicely. I even I don't know if you know this, but when you slice meat, there's a direction you can slice that makes it easier to chew right? Even I went that far Jenny breaded it nicely. I put seasoning on a nice daddy mother Jennifer, you know and then then the kid then he acted like I was trying to give him one of these cut rate macros. And but after a long time, it just switched and just noticed how his palate just changed. He doesn't want a frozen dinosaur that somebody said has chicken in it because I'm not certain it was chicken. You know what I mean? And so we did that. And then we did it in as many places as we could but but my thought here You're for people. And you were just saying that a second ago, when you look at something, you look at a piece of chicken and somebody says you what's in that? Your answer is? Chicken, Chicken. Yeah. When someone says, that's a grape, what's in that? Your answer is, it's a grape. When somebody says, hey, what's in that Oreo? You don't go Oreo.
Jennifer Smith, CDE 15:20
Let's look at the ingredients on the package. How many are there? Can you read them? Do you know what they are?
Scott Benner 15:26
Right? If you there are, I don't know how many things and I don't even mean to just pick Oreos, but anything like that. There's 2030 things in there. And you don't know what any of the more and this is this oversimplified thing I've been hearing people say for decades. And it just becomes more important when you're the one that has to figure out the insulin, not your pancreas, because you can your body can hammer through a lot of crap. Like I'm pretty sure we could eat stones and get away with it for a little while. Don't need stones. But you don't need mean like like, we're not birds. Birds eat stones,
Jennifer Smith, CDE 15:59
birds, some birds, it helps their digestion if you see birds on the side of the road. Totally random thought. But yes, they're like picking stones you'd like why is that bird picking through the stones? It's because the stones in the digestive system help to? Oh, I don't know that it's all birds. So if you are a bird expert, I am certainly not stepping on toes. I I know that birds eat stones, not all of them
Scott Benner 16:24
do. I thought you just said birds because I said penguins earlier. But no. But my point is, first of all, I can't believe I have to say this, please don't eat stones, your body cannot process. But my point was is you can put a lot of crap in yourself, especially when you're younger, and your system can fight through it. It doesn't mean it's good for you. And it doesn't mean you're not going to have short term or long term, like health effects from it. But I think that thing tricks us a little bit. You know what I mean? Like, you go out on a Friday night, and you have nachos and this and you have pizza and you're drinking beer, and the next day, you know, someone says Are you okay? And the answer is no, I'm not okay. And then more of the answers, you probably shouldn't go in the upstairs bathroom, you know, like, like, five or six hours later, you feel okay again. And that somehow, I don't know how humans think Jenny, but somehow we don't think about the time spent in the bathroom, clutching the wall. Talking to Jesus.
Jennifer Smith, CDE 17:22
It's almost like our taste buds when out, right? The memory of the of the taste, and maybe even the social experience that went along with the taste and the enjoyable like eating experience. All of that is more of the forefront of the brain. And Out goes the experience of the bathroom that you spent four hours in. Yeah, you know, it's it is I humans are. We are interesting, right? And really interesting.
Scott Benner 17:50
And what I see anecdotally is when people are diagnosed with diabetes, their first thought is generally I don't want to lose my freedom, about how I eat. And I don't want you to either. I mean, if you listen to this podcast long enough, you'll know I think you should eat whatever you want. I just want you to know how to bowl a sport. So that's what we're talking about here. Whether you're going to eat the Twinkie or have a pile of nachos, or eat rice, quinoa, you know, or somewhere in between, right?
Jennifer Smith, CDE 18:18
And I think what it boils down to honestly is given like the more newly diagnosed and this information coming to them, carb counting, know that the carb count is like, it's like the base step right? Now you know how to count how much you're eating. But the next step of that and very close to it really is, what kind of food is it? Is it a slow action kind of like a turtle? Or is it fast? Like the hair, right? I mean, if you imagine those two, just simply, it'll help you make more sense. And then look at what you're already eating. Regardless of what somebody told you should be eating or shouldn't be eating anymore. The easiest thing to not change yet another piece of your life. Take what you're eating, and see how things look after you eat those foods, and you can say, Okay, I think this is enough insulin, but it looks like my blood sugar rose up too quickly. Gosh, Scott was right. Maybe I need a little bit more Pre-Bolus Right. So let's try that and be this is more of a high glycemic food. It's not really so slower medium like I thought it might be.
Scott Benner 19:33
So yeah, you know, I'm funny. I'm looking at two different statements here from two different people. And if you want to know why it's easy for people to get confused. These are two statements that are I think, pretty consistently told to everyone and they completely they they clash with each other right? The one person says the hospital made it seem very black and white. You eat X amount of carbs and you take x amount of insulin and just go on then live your life. And the next person says, it would have been nice to understand that all the free carbs they were telling me I could eat weren't really free. And it's it you know, so what? Which is it? Are there free carbs? Or are there not free carbs? And every card gets covered? The real answer is in between? It is
Jennifer Smith, CDE 20:18
yeah, it is. Absolutely, I think the first statement is take this amount of insulin for this amount of, of black and white carbs, regardless of what it is, and it should cover that amount of food. But now we're digging deeper into insulin action and food digestion. So it's it's a, it's a road kind of that veers off of take the insulin to cover this amount that you counted. It may be a timing thing, you know, something like a big bowl of cherries, for example, you definitely need that insulin. Now, the same amount of carbs though in a grilled chicken caesar salad. You may need that same amount of insulin, but I can guarantee you don't need it all up front.
Scott Benner 21:06
Do you think that they talk about free carbs more with kids, because they've they've already given the kids a wide target range to begin with. So if your kids at and drifting down, you can give him this, I don't know a certain number of these things. And it's free. Don't bother giving insulin for it because they know you need it to fix the blood sugar. And the bigger idea about insulin you don't have yet. All right, ready, this is off the top of my head. I don't have anything in front of me. 30 seconds. For each one, I have a stopwatch in front of me and go the Dexcom G six is a continuous glucose monitor. You wear it to see your blood sugar's speed, direction and number. For example, my daughter's blood sugar is 104 right now, and it's steady. I just saw that on my iPhone. You could actually do that on your iPhone or your Android device. dexcom.com forward slash juice box. Check it out. It is absolutely one of the greatest things I've ever seen managing insulin dexcom.com forward slash juice box 30 seconds. This episode of The Juicebox Podcast is sponsored by the Contour Next One blood glucose meter. Go to contour next one.com forward slash juice box when you get there, you're gonna know everything you need to know about the greatest blood glucose meter I've ever seen, held or touched fits in your hand wonderfully. It's an amazing size. It has a great light, it's easy to read and it's incredibly accurate Contour Next One, go to contour next one.com forward slash juicebox that was 30 seconds. So okay, now oh my gosh. US med go to us med.com Ford slash juice box or call 888-721-1514 To get your free benefits check. US med is where I get Arden's diabetes supplies. They're the number one distributor for Omnipod dash, they have over 1 million diabetes customers worldwide. And they always give you 90 days worth of supplies and fast and free shipping with that one over 30 seconds. Sorry, they carry everything from CGM to all of your diabetes needs us met.com forward slash juice box links in the show notes links at juicebox podcast.com. This one's not going to be easy. I have to say certain things. Okay. There's no way I'm gonna get this done. You want it? Oh, I'm scrolling up. Do you want an insulin pen you're not quite ready for an insulin pump, but you'd like to get some of the functionality that insulin pumps offer. If that's you, you're looking for the in pen from Medtronic diabetes. You can learn more and get started today in pen today.com in pen pairs with an app on your phone to give you much of the functionality that you see with type one diabetes and insulin pumps but you get it with a pen. In pen requires prescription and settings from your healthcare provider. You must use proper settings and follow the instructions as directed where you could experience high or low glucose levels. For more safety information visit in pen today.com The Omni pod five baby it's here automated insulin delivery system it is available on the pod five is the only tubeless automated insulin delivery system that integrates with the Dexcom G six CGM and it uses smart ingest technology to automatically adjust your insulin delivery every five minutes helping to protect against highs and lows without multiple daily injections. The Omnipod five is currently cleared for people with type one diabetes ages six and older and if you have the option, and you have the option, dammit to control it from a compatible smartphone, Ali pot five is also available through your pharmacy which means you can get started today. Damn, which means you can get started without the four year Durable Medical Equipment contract that comes with most insulin pumps. Even if you're currently in one RT with another system. So to get started today with the Omni pod five, go to omnipod.com forward slash juice box for full safety and risk information, a list of compatible phones as well as clinical trial claims data, go to omnipod.com/juice box. Alright, I don't think I'm going to get this last one in. But it might go a little past the music already. G voc hypo pan has no visible needle, and is a premixed auto injector of glucagon for treatment of very low blood sugar. In adults and kids with diabetes ages two and above, find out more go to Jeeva glucagon.com forward slash juicebox G voc shouldn't be used in patients with insulinoma or phaeochromocytoma. Visit G voc glucagon.com/risk. And the bigger idea about insulin, you don't have yet
Jennifer Smith, CDE 25:51
it could very well be and remember a lot of kids initially diagnosed are very sensitive to insulin, and may have a ratio that's something like one unit for every 50 grams of carb, well, then really, if you're starting out, you don't have a pump yet. And you're using multiple daily injections, and your child wants to eat five grams of cucumbers. That that's free. There's there is no way to dose for that. Right. You know, well, I shouldn't say that. You can dose you can dilute insulin, you can get micro doses of rapid insulin, but that's another that's another regular.
Scott Benner 26:27
Yeah, it's funny, as we're talking, I think, here are the words that are missing when people are talking to clinicians, right now. These foods are going to be free. But that probably won't be like that forever. It's the it's the those things are the things that no one tells you. Because as I'm reading the I mean, we're going through these bold beginnings things. And the thing that sticks out to me most is that what you get told in the beginning really, really sticks in your head. Yes, you know, and then when things morph and change your honeymoon ends, or your kid gains 20 pounds, and all of a sudden, a half a unit, it's not enough to you know, just tank them completely. Once things change. People hold on to the rules they were given at the beginning, and then the rules and reality don't match any longer. And no one ever comes by and tells them Oh, that's fine. This stuff changes, you know, be flux.
Jennifer Smith, CDE 27:25
Excuse me, I think also that goes right along with that is it is the concept of change. And people rightly so they take the information they have been given as if it's written in stone. And this is not going to shift. Again, some explanation needs to go along with it in terms of especially kids who have very fluxing needs for many, many reasons. Not that a newly diagnosed adult doesn't initially to, but I think more so for kids, especially since their insulin doses may be microscopic. To begin with. You have fried foods for a child who's really residing on just a couple units of Basal insulin, and really doesn't seem to need coverage at all for meals yet. Yeah. Eventually, those foods that look like they're free, will need to get covered. Eventually, as their insulin needs creep up that five gram treat or snack in the afternoon, as their insulin to carb ratio becomes more aggressive, they're going to need some insulin to cover what you didn't really need to give insulin for before
Scott Benner 28:33
this other thing that happens to people where they get told to eat a certain amount of carbs at a meal. Even when they're using a fast acting meal insulin, that again, I think of his lazy, the description that was given to them because I think what's really happening is the clinician saying to them, Look your kids so small, I don't know how to break this down beyond a half a unit of insulin. So you're gonna have to eat 20 carbs. So you can give this kid a half a unit of insulin correct. But instead the takeaway from the family is he has to eat 20 carbs every time he sits down. And then they start getting into the like, Well, how do I eat 25 carbs, no one tells me that. So now if I want more than 20, I have to eat 40. And then and then kids can't do that. And because it's too much food for them. And again, if someone would have told you the reason we're doing this right now is because we just can't get the amount of insulin low enough to tell you how to Bolus for eight carbs. But don't worry, kids gonna gain weight, this is all going to change, honeymoon is going to end etc, etc. Again, I think it's the rest of the words that nobody speaks that are always what causes the problem.
Jennifer Smith, CDE 29:40
No, yeah, that's absolutely correct. Especially, you know, again, for a kiddo who's like a one unit might cover a warming meal, but they're three years old and they're not going to eat that large amount of food. Then you have to break it down a different way for them and it takes It takes individualizing the care from the start. It does.
Scott Benner 30:05
What do you think about the idea that most people newly diagnosed are going to be MDI. And that the way I heard somebody told me the other day that the podcast is about, it's for pumpers. And I thought, I don't think that's true. Like, I think that what we talked about works fine. If you're doesn't matter how your insulins getting in, like, you lose, right, can't do an extended Bolus, you know, without a pump, you can't shut your Bayes law for Jack it up without a pump, okay. But the rest of the stuff is just about putting in insulin at the right time using the right amount the right time.
Jennifer Smith, CDE 30:39
I, I wonder if some of that timing though, I can say I mean, we do refer to things like extended Bolus and Temp Basal are using, you know, the fancy features of all the other algorithm driven kind of systems that are out there. But from a timing perspective, it covers both bases, it covers MDI, and it also covers pumping. But in a sense, you have to be okay with potentially giving more injections, on MDI, in order to cover the food the way that you want, and get the sort of out, you know, the aftermath covered the way that you need it to be. So you can do that. And from the beginning, again, we've talked about this in stacking right, from the beginning, people get scared of stalking their insulin, and they need to learn from the get go that if you're going to eat little bits, as many little kids do a little here a little here a little here, you may have to figure out how to get the insulin in in the right amount to cover that little bits of nibbles along the way. Yeah.
Scott Benner 31:52
I have this thought from this person here that I don't I kind of don't see how it fits into this conversation completely. But it is really interesting to me. So I'm gonna mark it and come back to it at the end. There. Oh, yeah. Okay, hold on. We were told snacking under 15. Carbs was free, just so this person was just told anything under 15 carbs was free, not just certain foods, like you can have a cheese stick, or you can have chicken or something like,
Jennifer Smith, CDE 32:18
I wonder what their initial dose of insulin was like to his I mean, 50. And as we've the 1515, right, anything under 15 is free, but I can use 15 to treat a low blood sugar. Right? I that's confusing.
Scott Benner 32:34
Yeah. I and then you wonder if this is what they were actually told, or if this is how they remember it. And or if this is exactly what they were told. And the person telling them was, was conflicting ideas. Yeah. Not all carbs are the same. This person says, I had anxiety about food and insulin, it took weeks to really get an idea of what a balance look like for me. So I, I can't tell you, I mean, I don't have diabetes, right. But I can't imagine what it feels like to be given this medication being told, Look, you have to use it. If you don't use it, you're gonna die. And if you use too much of it, you're gonna die. And it's connected to everything you put in your mouth. I don't know how that that must freeze people. The idea that that eating disorders come out of type one diabetes frequently is very easy to see. It's not at all shocking, right? Because of that feeling, like this paralysis of analysis that you must get I hate using terms like that. But But that idea of just like, What do I do? And then everything you've been told, is scattershot. It seems, I mean, some people come away with great, you know, with great information up front, but for the most part, I don't get to talk to those people very frequently.
Jennifer Smith, CDE 33:53
Right. And I think it also speaks to the very individual nature of how you first teach somebody about their diet, you know, their diagnosis with diabetes, you can't, from my perspective, you can't approach somebody the same way as you did the person three hours ago, there is no way to do that from a newly diagnosed standpoint as well. You still have to ask enough questions that help you to individualize the care so that their lifestyle while it's going to be impacted, is a little bit more. It's a little easier to get them to understand how to do these things within what they had been doing before diagnosis from a from a comfort level and there are some personalities that certainly require some additional assistance sooner than later.
Scott Benner 34:50
Yeah, no, I mean, obviously, there are some people who just get like, I'll do it tell me what to do. I'll do it right and there's some people are like you're not changing my life. And again, Anywhere in between a we just tell them all the same thing and sent them home? Right? Is this accurate? This person says, the kids are hungry for a few weeks after diagnosis, like overly hungry.
Jennifer Smith, CDE 35:14
That's in a general sense, especially if they have lost a fair amount of weight. Because their body was essentially eating itself. That's the easiest way to explain it. You know, when the blood sugars are running so high, obviously, they are losing a lot of calories through urine excretion. And so after diagnosis now, when their body actually is able to, gosh, I can grab this food and I can pack it away, I can store it, absolutely. Kids can get very, very hungry. They're also in a stage not to say that adults or you know, those over the age of growth couldn't also be hungry again, especially if they've experienced that extreme weight loss before diagnosis. They may also their body is just telling them, Hey, we need to put this back on. You lost a lot. We have to sort of recoup what what was kind of given away, but kids are growing already. So you could expect them to be hungry,
Scott Benner 36:12
right? Even if they're just more feeling healthier, because they have insulin, and they're getting back to where they were. But I mean, Artem was down, excuse me, Arden was down a fair amount of weight, she was small, and she was ravenous for a little while as well. Somebody just says here, it would have been nice if somebody gave us the rundown about the glycemic index and glycemic load. If you go to the Pro Tip series, there's an entire episode about that. Earlier in the podcast. Jenny touched on a little bit about giving you lists of foods that impact differently. But if you I was going to say if you want to understand but you really have to understand it. So go find that episode. Understand you know how how words that seem a little weird and confusing and stuff you haven't heard before are really important glycemic index and glycemic load. While we were in the hospital, we were told not to do more than 45 carbs a meal. So she says this was clearly BS. We felt the need to go to the store and buy a ton of diabetic food. Of course, we haven't bought any of that sense. So it's just a it's just an insight Jenny into how saying something to someone incorrectly or not conversating with them to make sure they understand your intent can send people down these crazy rabbit holes. I don't know that people can afford to go to the grocery store and spend hundreds and hundreds of dollars re fitting their home only to find out later that magic spoon cereal tastes like not good. I'm sorry for those of you who like it.
Jennifer Smith, CDE 37:46
I like magic. Cereal is the one process thing and I will say it is processed I mean it there is no doubt about it. If and when I have it we do it for like a road trip or like to go camping or something because it's it's a little bit easier. And it certainly doesn't have bad impact on my blood sugar. I have tried some of the other brands out there, which I will not name. But the magic spoon is definitely one that I can I can say works like it says it's going to work glycemic ly. And many of the flavors. I won't say all of them, many of the flavors are palatable.
Scott Benner 38:24
Art we tried one said, I'm gonna have to bleep this out. Arden said where are they trying to approximate Hold on a second. I'm making myself laugh unintentionally, or were they trying to approximate what a unicorn say, almost tastes like he did not like it at all. He didn't like the garbage. But that's fine. There are a lot of people who love it. And I think that's terrific. But but the point is, is that if you say something specific to somebody, you can never have a meal again, that goes over 45 carbs. They think well, how are we going to accomplish that? Right? You know, now they're in that one aisle at the grocery store that nobody goes into?
Jennifer Smith, CDE 39:07
is unfortunate. If you go back, you know, I don't know, 15 minutes ago when we're talking about real food versus processed food, all of the all of the food that is labeled diabetes friendly or whatever they're calling it now. It is processed Yeah, there is nothing. There is nothing in it. That is there are a few pieces, I guess a few ingredients but most of it is artificial sweeteners of some kind added fibers of some kind or some nature added protein powders of some nature, right? I mean, so you're better to go home and at least just keep eating what you've been eating and maybe then asked for help cleaning it up or figuring it out or whatever. Or just go to the produce
Scott Benner 40:02
weighed real food. Yeah, what is that they put in the diabetic. I wish people could see me making the finger quotes, but diabetic case sort of a tall, right. And if you get too much of it right,
Jennifer Smith, CDE 40:14
the bathroom will again be your friend. Yeah.
Scott Benner 40:17
Because things will be flying in all directions. Don't eat too much candy. Just eat regular candy, learn how to pull it sport for God's sakes. Right? Yeah. This is interesting. This person says that they were told that anything was free under 15 carbs. On top of that they were told not to Pre-Bolus their meals. And they said that these two things together made any kind of stability in their blood sugar impossible. Absolutely. Yeah. Right. I mean, and I wish someone would have given me a comprehensive list of actual zero carb snack. So this is the I
Jennifer Smith, CDE 40:56
don't know, I don't know who would have said, I really don't that. It makes me really, really sad that there are that there are education teams out there that are giving this kind of information. Really, I am like, I have nothing. I don't really even know what to say about that. I really don't. Jennifer's mortified. Yeah, I am. I'm mortified. Honestly, from a professional level, I am mortified that somebody would have given that information.
Scott Benner 41:25
Yeah. So here's the next thing that's gonna happen. Pizza's gonna get ruined for you. You've been diagnosed with diabetes. And, and there's this thing that through 35 minutes of talking here, we have not gone over which is yes, food. One broccoli hits your blood sugar in a certain way. And yes, mashed potatoes hit in a certain way. And yes, mashed potatoes will hit differently if you put butter on it. And if your meatloaf is just meatloaf, that's one thing, if you put gravy on it, it's another thing. What happens when you eat them all at the same time, right? They're all in a mixed meal where they all live. The way I like to think about it, when I'm thinking about insulin is where they all live on their own kind of timeline of existence in your body. Like an impact timeline, the broccoli impacts with a certain amount of force over a certain amount of time, as does the butter, and the potatoes, and the beef, and the flour and the gravy and all these different things. And you just thought it was gravy and mashed potatoes. And now you're realizing, oh geez.
Jennifer Smith, CDE 42:30
I think one concept there is the the typical, the typical mixed meal of proteins, carbs, and fats, right? All the macronutrients in a portion that should be eaten. Should should have a typical absorption or digestion that goes along with the Action Timeline of our rapid acting insolence. Okay? The, the larger the portions get, or the higher in one macronutrient versus another, like, really, really large amount of the meatloaf and like a spoon of the mashed potatoes and maybe one stalk of broccoli, right? Do you see there's a there's a definite difference there. And that goes back to impact on blood sugar and what you may end up seeing happen. So portion comes into play, to not only just carb counting, but a portion of a combined mixed healthy meal. And the impact that you're going to expect to kind of see Yeah, so
Scott Benner 43:47
the idea being, we'd all be okay, if we took a handful of potato chips once in a while. Eating the entire bag of potato chips has a different impact on your body. Yeah. So alright, so back to pizza. And Pizza gets described throughout the podcast a number of different ways. But pizza is not just pizza, it's flour, and it's cheese. And it could be meat, right? Or it could be vegetables, it gets the sauce. There are all these different things on this one delivery system. When you understand how to Bolus for pizza, that will actually open your mind up about bolusing for a mixed meal too, right? Because why? Because you look at a slice of pizza and you say, well, the box tells me or the pizza place told me this is 35 carbs, you Bolus for it. The food goes in your body doesn't start breaking it down right away. So your Bolus makes you low. Then you end up drinking a juice because you get so low and then all of a sudden 45 Yeah, the pizza hits you and now you're you're just you're lost because the insulin you put in was for the pizza. You didn't cover the juice because you were alone, etc, etc. And then you learn when to Bolus for pizza, right? Like when does the insulin go in versus When's the food going to hit? How do I balance these things up? This is what you're going to learn in the Pro Tip series for certain, if you go listen. And you'll also be able to see bigger picture about other meals, you'll be able to look at a plate at a mixed meal and say, Okay, this turkeys not going to hit very hard. It's five or six carbs, maybe. But here's the stuff that is going to hit me. And you just I don't know, at some point you just learn, right, Jenny, it's not a
Jennifer Smith, CDE 45:26
you do and that it kind of in. In that example, it kind of also goes back to figure out the foods that are pretty normal for you because that that base knowledge rolls over into other meals that may not be your typical, but appear to have similar enough content that you could expect to try to use your insulin the same way around this newer meal, right. Pizza as an example. On Nacho dinner, right nachos and meat, cheese and guacamole and whatever else comes on that they are all similar monsters, if you will. A burger and fries or a cheeseburger and fries, for example. They all have a lot of mixed nutrients that are going to be similar to pizza. So if you have the most experience with pizza, and your friends are like, Well, hey, let's go out for Burger night on Friday. You know, like okay, well, it's definitely high fat, just like my pizza. Let me try the pizza strategy. Right? Let's see, right?
Scott Benner 46:35
Yeah, even even you find yourself in a place where you get a burger. And then you grab a milkshake. And you probably think ice cream sugary fast, right? More, really, it's the fat in the ice cream that's gonna kill you right later later. Yeah, a whole bunch of episodes about how to Bolus for fat and protein. And that's the next part of this really, is that this whole conversation is based around carbs, because that's people's understanding that they're given. Except protein breaks down in your system and turns into glucose. And fat slows down digestion, which changes Bolus timing. There are other things to think about not just carbs, I'm gonna roll through some people statements here just so you can hear them right. I cried about never being able to eat cake again. I know it's ridiculous. But that's what got me. And now I learned how to eat up because of the pocket. Oh, I wish people would have told me about the glycemic index again. I wish people would have told me that my kids will be starving because of the way they set this up. And that's how it's going to feel. So now the kids are running around asking for food asking for food. And the parents like I'm sorry. You can't eat for three hours or we already Bolus for something you should have told me before. And all the stuff that they get messed up when these are some of these are really sad. Oh, my first couple of weeks, I thought I needed to have three hours after dinner before giving my Lantis like Ha he. So he's eating dinner right now. And at 9pm. I was leaving for work early. And this was stressing me out. So isn't that interesting, just a misunderstanding about when somebody told them to shoot this Lantus at a certain time, they get stuck in their head as a rule. And it creates all this anxiety for this person down to like they're now making meals when they don't want to have them to. To right.
Jennifer Smith, CDE 48:23
And again, there's lack of proper information given Yeah, it's your Basal insulin might be a very defined time of the day. But dosing that at that time of day doesn't go along with your whatever rule you've been giving about the dosing of the rapid insulin Yeah, at all, that they are independent.
Scott Benner 48:44
Right? This person says I wish someone would have just told me a little bit about how to visualize portions. Ah, see what to what you just said. Because apparently prior to that they were eating, what occurred to them and not, you know, they know people don't really think about it, right? Like, we don't talk about that, like a scoop of mashed potatoes is probably Oh, no. See you.
Jennifer Smith, CDE 49:08
I mean, you do you do or did a lot of assistance for Arden. She's been growing up, you could sit down at a dinner out, and you're focused on what's coming on to her plate. But when it comes to your own plate, are you also like, oh gosh, my burger? And is it about the same? No, you just start eating.
Scott Benner 49:27
I'm saving. I'm making her live forever. And I'm killing myself with this.
Jennifer Smith, CDE 49:32
There is no care for what's on your plate in portion.
Scott Benner 49:35
Right. And so that really is the I mean, listen, that's a bigger conversation, obviously. And I don't want to just say like Americans or anybody you know, like, is that we don't think about stuff like that food is plentiful in this country. Right? You don't think about like, well, I'll just have a little bit because I want to have some more for tomorrow, right? I mean, how many times you eat something you don't finish it again. You throw it the trash, you don't think twice about it there. You feel like there's always going to be more Food. So that feeling there's something about finances and food that go together, I haven't had I don't have this all worked out yet in my head. But when you can afford it, you stop thinking about it as nutrition and you start thinking about it as a thing you need. And because you can afford it, you can eat it, if that makes sense or not
Jennifer Smith, CDE 50:24
possibly and, or if you can afford it, you can do a little bit more specialty, or you can choose to do a little bit more quality, let's call it from specialty items. Whereas if you can't necessarily afford it, or you have just a budget that you really stick with, right, then what comes into the house may be very different.
Scott Benner 50:51
And I think that thought works in two different directions. Maybe if I can afford it, I can buy better food. And I can show it right? I should because I can afford it. But also the other side of it, I can afford it, so it doesn't matter. And the personal, like, the thing I can say is that I have found myself sometimes he's like a little candy dish. And I'll sometimes take candy out of it. And I don't want it. And at first I thought like, okay, like that's a snacking function. But I also realized back when I was broke, I wouldn't have touched it. Because the candy would have been so special. It wouldn't it was, it's almost like a favorite. It's almost like, I never missed the Charlie Brown Halloween special because it only came on once. And if I missed it, it was gone. But now I could stream it anywhere I want. And so I can just grab it whenever and the food almost falls into that category. Sometimes I can afford it. And it's here. And I stopped thinking about it as nutrition. And I just sort of I think about it as a possession almost right. That makes it
Jennifer Smith, CDE 51:54
does Yeah. You know, the other day I was I was chatting with somebody and they're like, Well, what would you have done if you wouldn't have gone this route of like, nutrition and diabetes education and whatever. And I said, you know, I, I have a very big health connection. And I said, I think I probably would have gone into the realm of educating on school information, that's health specific, to start with educating from kindergarten forward, each year builds on itself with what the kids learn in terms of their health and what they put in their body and exercise and how that builds into an adult healthy level of living, right. I mean, my, my little guy the other day, we've made a stoplight thing for our pantry. It's got a red, yellow and green light on it. He made it and we put it in there. And he knows the green foods, he can have those. As long as he's hungry. He doesn't really have to ask much about them. The yellow foods he needs to ask about and the red foods are absolutely I mean, they're not even typically in there, or they're very much on the top shelf. But it's a good way to start educating on a very early level of these foods we can go to because they're really good. They serve our body these foods, they don't need as much of them. They're still good. Or we don't really need them as often. And then, you know, but if we did more of that,
Scott Benner 53:26
right? And then it would work like the chicken nuggets with my son. Yeah, eventually his palate would just desire something that was better for him. Right? Yeah. Jane, do you have a minute or do you have to go? Yeah, I've got a minute, just unroll through a couple of things here. It would have been nice if somebody would have told me the difference between a correction Bolus and an insulin to carb ratio. They didn't understand that. That one person said that they gave me a Basal Bolus doses just excuse me, they set up Basal and Bolus dosages for my kid, but never asked about their physiological activity. And the kid was a super aggressive like active person. And so the kids always falling always falling. And of course, the mom is so new to it. She never puts two and two together. Just thinks this is what diabetes is. My kids got a thing now where his blood sugar's low all the time, right? Because
Jennifer Smith, CDE 54:19
there's no explanation to why it's happening. Right? You know it Yeah,
Scott Benner 54:23
yeah. So then she comes online and learn stuff and and then puts two to two, two and two together on her own and figures it out. The last thing was, I said I was gonna go back to something.
Jennifer Smith, CDE 54:37
Oh, yes. I don't know what it was because you
Scott Benner 54:40
didn't know I haven't. wrapping my head back around that again. She was just talking about that prior to insulin. Her whole understanding of medications was in pill form. And somehow that that predominantly made her believe that every thing was super regimented, because you take the pill in the morning with food, and then you take it again at lunch with food and everything she'd ever learned about about medications was based on timing. And then she couldn't make the insulin work the same way. And it was frustrating. I don't know why I wanted to bring that up other than,
Jennifer Smith, CDE 55:23
well, I wonder if the person is an adult who was diagnosed initially with type two diabetes?
Scott Benner 55:31
No, it's for a kid, I said, the kid, the beginning of the statement is my kid was starving, because I was trying to keep a schedule.
Jennifer Smith, CDE 55:40
So they're in again, should have been better explanation in terms of timing of insulin, it really is, because it oral oral medications, or even some other injectable medications. They all have a timeline of action, from time of giving to expected time to give the next dose, right. But they are, they are not as precise in terms of what we can then control versus insulin being much more in our realm of controlling. Because we can put it in when we know that we're going to need it based on what we're putting it in for. Even if it's for food, we do it this way. If it's for correction, we do it this way. And we might even do something else along with it. Right. So I think insulin is definitely very different than pills. Yeah. And that is that's unfortunate, too. And I don't think the doctors maybe, obviously, maybe they didn't ask enough questions in terms of understanding of medication use.
Scott Benner 56:50
It made me think about people with thyroid issues. Because when you get a thyroid issue, a doctor is going to explain to you very clearly, you have to take this medication at a certain time of day, you have to take it with, you know, an empty stomach, you have to take it not with other pills, like and or you can take it with some pills, but not all of them. And here they are. Because if you don't, your body will not take up that medication correctly. And you're going to have a deficit that will come on you slowly. And you'll just sort of your your functionality falls apart. And you don't see it happening because it happens so slowly. And still, if you go through the forums and look at people who have thyroid issues, most of their problems are because they don't take their medication correctly. correctly. Yeah, right. It's all about like, you know, I don't know, like, I just take it when I think to take it no, take it at the same time every day, because it only lasts for 24 hours. That doesn't seem to matter to them. I don't understand, I take it every day, I never forget with my vitamins, and then you look at their vitamin list. And they're taking vitamins that are blocking their absorption, the absorption of the thyroid medication. If you can think about that pill correctly, you can think about insulin correctly. And because insulin is not going to work the same in every situation. And in the beginning, that seems incredibly overwhelming. But if you I can't believe I don't I just I mean this the way I mean this, if you listen to the podcast, you'll understand those different situations eventually. And not because the podcast is magical. But because you'll hear conversations and scenarios and experiences that will eventually teach your brain like the stop and go like that your son made that. Yeah, I'm gonna do this thing, because this thing is what works for me. It's not because you've beat it into your head, or you wrote it down or you, you know, you remembered it's because it happens. You just do the thing, because it's the right way to do it. And you've heard it enough times where that's how it happens.
Jennifer Smith, CDE 59:00
Well, I think the biggest thing to within many of the episodes. Actually, I'd say all of them is something to do with a variable. Right? Yeah, it is. So if you if you pay attention and learn whether it's learning from somebody else's experience and saying, Well, I have this same sort of lifestyle, maybe I could give that a try, or that sounds like it would work better. Maybe this is why it's not working for me. Right?
Scott Benner 59:29
Well, you know that you said that. I skipped over a statement from a person here who said I wish someone would have just told me that breakfast will have a different impact every day. Even if I eat exactly the same thing, and I thought I don't want to go through that because that's not really true. It feels like that. Because that's what you see. You see the I put the insulin and at this time they ate the same food and then something different happened. But you don't see how much insulin did they have over Night. Is this a moment where there is a growth spurt or there's not a growth spurt? Is my period happening? Is my period not happening have less I very active yesterday or very sedentary? All of those variables. People who ask questions like that in the beginning, they don't see that the truth is, is that the meal and the food that didn't change something else change and you don't realize it, maybe you're on a prop and you're at the end of a pump site and it's going bad. Or,
Jennifer Smith, CDE 1:00:27
or maybe you're on an algorithm driven pump. And because settings aren't quite navigated appropriately, the system is doing one thing, some mornings giving you a load of insulin getting you ready. And so your aftermath of breakfast looks a lot better, right versus taking away. And now you're left with, you know, this deficit of insulin and then things look the opposite of what you really wanted.
Scott Benner 1:00:47
Yes, there are so many variables, yes. And the only way to learn them is to live through them. And to not put yourself in that exact mind set of that question, which is why I didn't ask that question out loud. Because I don't want people to think that I don't want them to think that diabetes just magically happens to them. Because,
Jennifer Smith, CDE 1:01:08
yes, there's nothing magical about right.
Scott Benner 1:01:12
It's all pretty, it all happens for a reason. The reasons are hard to see. And again, you keep listening to people's conversations and they say something and finally, like it pops in your head, you go oh my god, and then you relate it to something in your own life. And before you know it. That's another thing you've got in your tool belt that you don't have to wonder about ever again because it's just there when you reach for it. So anyway, I thought this is a great conversation. I appreciate you. Absolutely. Thank you. A huge thanks to you all for listening and to Jenny for coming on the show. I'd also like to thank in pen from Medtronic diabetes and remind you to go to ink pen today.com Us med.com forward slash juice box or 888-721-1514 Get your free benefits check today. Don't forget the Contour Next One blood glucose meter is available at contour next one.com forward slash juice box to get the glucagon that my daughter carries go to G vote glucagon.com forward slash juice box Omni pod five. Are you interested where the Omni pod dash doesn't matter which one you want? You get them@omnipod.com forward slash juice box and get the Dexcom G six continuous glucose monitor@dexcom.com forward slash juice box. I appreciate you guys putting up with all that today. I want to remind you that there are more bold beginnings episodes in your audio app. And they're also available at juicebox podcast.com diabetes pro tip.com. And at the private Facebook group Juicebox Podcast type one diabetes. The bold beginnings episodes begin at episode 698 Defining bold beginnings. Then at 702. honeymooning 706 adult diagnosis 711 terminology Part One 712 terminology part two, Episode 715 is fear of insulin 719 The 1515 rule 723 long acting insulin 727 target range 731 food choices 735 Pre-Bolus And today's episode, carbs. There are more coming, check them out. There'll be there in your audio apps on Friday for subscribers. They just pop up if you're a subscriber, a subscriber or a follower, by the way, in whatever app you're listening in. It'll just magically be there. So subscribe and follow, follow and subscribe. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast.
Test your knowledge of episode 739
1. Why is continuous glucose monitoring (CGM) important for diabetes management?
2. What is the purpose of different types of insulin?
3. How should insulin doses be adjusted?
4. What impact does physical activity have on blood sugar levels?
5. How can stress and illness affect blood sugar levels?
6. What role does diet and nutrition play in diabetes management?
7. Why is having a supportive network important for diabetes management?
8. How can staying updated on the latest advancements in diabetes care help?
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