Scott Benner 7/6/20 Scott Benner 7/6/20

#353 Quite a Pickle

Diabetic Dyl Pickle that is…

Dylan is a young man living with type 1 diabetes, hypothyroidism and fibromyalgia. He also shares his experiences with the world.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Pandora - Spotify - Amazon Alexa - Google Podcasts - iHeart Radio - Radio Public or their favorite podcast app.

Check out the Diabetes Pro Tip episodes and Juicebox Docs

+ Click for EPISODE TRANSCRIPT

DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends. Today's episode of The Juicebox Podcast is sponsored by the Contour Next One blood glucose meter. And by touched by type one. You know what? I should have said that backwards I'll tell you I think that one touched by type on has buy in and be Why? And I said this and buy and I think it ruins the flow of language. Watch this Hello friends. Today's episode of The Juicebox Podcast is sponsored by a dozen hidden works that way too I say touched by type when I go by touch by type one. Today's episode of the Juicebox Podcast podcast is sponsored by there's no way out of this is there Hold on a second. And how the music's playing. I gotta think faster. Well, first of all, this episode of the podcast is with a young man named Dylan and he is absolutely delightful. Dylan has type one diabetes, hypothyroidism, and Fibromyalgia is a wonderful Facebook page where he's trying to tell people about type one diabetes, and he'll explain about some of the experiences both good and bad he's had trying to share been pushed around a little bit online. But I think the way he handled it is really excellent. I want to tell you that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, please always consult a physician before making any changes to your health care plan, or becoming bold with insulin. Right now how do I talk about the sponsors without saying by and by consecutively? Today's episode of the Juicebox Podcast game sponsorship from touched by type one, and the Contour Next One blood glucose meter, please go to touched by type one.org or Contour Next one.com. For more information, you may even be eligible for an absolutely free Contour. Next One meter you'll find out the link. And they're also linked in the show notes of your podcast player at Juicebox. podcast.com. I mean, whenever you're ready.

Dylan Giuliano 2:14
I think I'm ready.

Scott Benner 2:16
I bet you are. Don't worry. It started off with just start off with your name.

Dylan Giuliano 2:20
Hello, my name is Dylan Giuliano. I've had type one Davies for four years and I work for jdrf. I am a Youth Ambassador. And I have a Facebook Instagram and YouTube page called diabetic dill pickle.

Scott Benner 2:36
So you are the kid that people called diabetic dill pickle. Yeah, that's pretty cool. So I see the word play. Right. Dylan? dill pickle. I'm right there. But where does that come from though? Is that something from your life? Or did it just come up to you when you're trying to think of a name? How did that? How did you end up with that?

Dylan Giuliano 2:54
Well, technically, I just thought of it in my head. My parents my just thought of it was actually technically

Scott Benner 3:01
my nickname. That's what I'm getting at. Like so people called you like dill pickle before?

Unknown Speaker 3:07
Yeah.

Scott Benner 3:08
Yeah. You know what I call Arden?

Unknown Speaker 3:11
What? boogers.

Unknown Speaker 3:14
It's funny for no

Scott Benner 3:16
for no reason. She doesn't have like, a bunch of boogers in her nose or anything like that. I just call her boogers. She walks into a room and I'm like, hey, boogers. What's up? And she just like, hey, and then it goes on from there. My wife actually said the other day. Why do you call her boogers? And I was like, I don't know. Don't you like it? And she goes, No, I'm like, No, no, I love it. So anyway, there's worse nicknames, right? Yeah. Her nickname seems to to move around a lot. We used to call her boo when she was little like before the monsters movie. And then they started using it in the monsters movie. And I was like, I can't do that anymore. It seems like we're ripping off Pixar. And we've gone through a number of nicknames. My brother has the best nickname in the world. And I'll tell it to you right now, but it's completely out of context. And I won't explain to you why it's his nickname. Okay. Okay, this is back when he was like 14 or 13. Originally, his nickname was good job, Bob. But eventually it became good job Bob the half naked Bruce Lee boy. And I can't tell you, but you can try to imagine how you would come up with a nickname where you're naked and Bruce Lee. half naked actually. all I'm gonna say to you, Dylan is that I don't think you should practice your karate in front of an open window without your shirt on. Okay. Okay. Good for you. Alright, man. So listen, how old are you? I'm 12 Oh, cool. And how? How old were you when you were diagnosed?

Dylan Giuliano 4:47
I was seven when I was diagnosed. Do you

Scott Benner 4:49
know that? That's been five years.

Dylan Giuliano 4:52
Well, actually, it's four.

Scott Benner 4:54
Okay, my math my math is wrong.

Unknown Speaker 4:59
Yeah.

Unknown Speaker 5:02
So, you're

Dylan Giuliano 5:04
all good. Well, technically, I was almost a basically, I was almost eight when I got

Scott Benner 5:09
sick. So my math is right. Your assertion isn't? Right, right. I so, so diagnosed around the time you were towards sort of the end of being seven. And yeah, and now you're 12. How are things? Well, no, wait, I was gonna ask you one thing I'm gonna ask, do you remember being diagnosed at all?

Dylan Giuliano 5:29
Yeah. So basically what happened? I was told the kid, I've been in many different rooms, like probably like three or four rooms, because they didn't know what one to choose me. And so I had in, they checked my blood sugar, and I was like, 590 it was, it was crazy. And they just thought I had the flu, but

I guess not.

Scott Benner 5:57
Yeah. So obviously, right. So up until or if you just had the flu, then this has just been one horrible practical joke on you for the last five years, or four years. Excuse me. But so you went into the hospital because you had like flu like symptoms

Dylan Giuliano 6:12
are basically my mom took me in like three or four doctor visits.

Scott Benner 6:18
So over time, she saw that you weren't feeling well, and she kept taking you back. And they weren't really doing anything about it. And then Is that it?

Unknown Speaker 6:27
Oh, yeah.

Scott Benner 6:28
Yeah. So you had to go a number of times before you before they could come to a conclusion. So it took them all the way to the hospital to check your blood sugar? Yeah. Wow. How long are you in the hospital?

Dylan Giuliano 6:40
Um, maybe like a week? Yeah, about a week? No kidding.

Scott Benner 6:45
To turn it into like a little vacation or were you just not kind of feeling better fast enough.

Dylan Giuliano 6:51
I just really wasn't feeling better fast enough. That sucks. How do

Scott Benner 6:55
you feel now?

Dylan Giuliano 6:57
Right now I feel way much better. Like I still have like a couple diseases mine but not all of them. Like I have fibromyalgia and low thyroid and stuff like that.

Scott Benner 7:12
You're just collecting, like, autoimmune issues as you walk down the path?

Unknown Speaker 7:18
Yeah.

Scott Benner 7:19
There's one. I'll take that one with me. So Alright, let's let's take a second for a second because you mentioned some interesting stuff. So hypo thyroidism. Yes. Okay. And you take Synthroid

Dylan Giuliano 7:33
Lords are low thyroid, and yeah,

Scott Benner 7:38
yeah, I do take a secondary medication. Like cider mill or no, no, just just the one. Okay. And what does it feel like? Well, how I guess what age did you start taking that medication?

Dylan Giuliano 7:53
Um, if I could guess, maybe

Scott Benner 8:01
this month, months ago, just months ago, actually. So within like, the last year you found out about hypothyroidism?

Dylan Giuliano 8:07
Yeah, gotcha. Just about a month ago, just about a month ago.

Scott Benner 8:11
Oh, she's very recently.

Unknown Speaker 8:12
Yeah. How were you

Scott Benner 8:13
feeling prior to being diagnosed?

Unknown Speaker 8:18
Um,

Dylan Giuliano 8:22
like, my stomach and stuff like that was hurting and I barely couldn't drink. Well, I barely didn't eat. I was just keep on drinking and drinking. just kept taking naps and stuff.

Scott Benner 8:36
stomach pain and tired, right? Yes. Yeah. Okay. So Arden has hypothyroidism too. And that's exactly how it presented to her. Her stomach hurt all the time. She actually was still hungry. So she ate through it. And

Unknown Speaker 8:53
oh, wow, she

Scott Benner 8:54
was incredibly tired. And she would have really and please, you can tell me if you want to, but she had a situation where she wouldn't go to the bathroom for a number of days. And then all the sudden she would go a lot if you know what I mean. And yeah, it wasn't exactly pleasant. Did that happen to you as well? Yeah. I see. Is there any chance that this episode is going to be called? diarrhea dill pickle, now maybe? I wouldn't do that to you Don't worry don't. But it's making me happy thinking about it. So it's really horrible. Like when your thyroids not operating properly. And you don't have the medication. It's crazy. Arden was exhausted like she could barely lift her head up sometimes. I don't know how she went to school some days and really terrible stomach pains. Wow, really, really bad. And then of course, you know, she'd eat meat need nothing would happen and then all of a sudden her body would just, you know, expel everything and then The process would just start over again. And there was no real relief from it. And, you know, we had you know, she gets tested for, you know, just like most people who go into their endo appointment shirt, her thyroid levels are tested yearly. And you know, the year prior, there was nothing. Had you ever now knowing about it the day ever that you know of see any indication from your blood test that something like this was coming?

Unknown Speaker 10:25
Yeah.

Scott Benner 10:27
So you could see your levels changing over time?

Unknown Speaker 10:29
Yes.

Scott Benner 10:30
Okay. So you didn't suffer too long before you thought? This is? hypothyroidism? I have to go back to the doctor.

Dylan Giuliano 10:37
Oh, m kinda.

Scott Benner 10:39
Would you think it was at first?

Dylan Giuliano 10:41
So at first, I kind of thought it was Moto, because of like, maybe a couple months ago. I got moto for a little bit.

Scott Benner 10:52
I thought you were gonna say it a couple months ago. I kissed a whole bunch of girls. Oh,

Unknown Speaker 10:57
God.

Scott Benner 10:59
Is that not what happened? No. How did you get moto then? I don't know. I don't know. I don't either. I don't really know anything about it. I had it once when I was younger. Like when I was like 19. I think I had it. It really sucked. I was like really beat up and it mimicked a lot of how Arden was when her when she didn't have her Synthroid. Like I was really super tired. That's how moto makes you feel. So you kind of like commingled those two ideas from it and thought, well, maybe this is just like, a leftover effect of the Moto.

Dylan Giuliano 11:28
Um, I think so. Yeah.

Scott Benner 11:31
Are you in charge? So how so you know what, let's do something here that might be interesting. How does it work? When you're a little kid, and you feel sick? Do you? Do you try to handle it on your own? Do you just dump it on your parents and hope they figure it out? Like what's, how does that all work?

Dylan Giuliano 11:50
So basically, I try and figure it out first, but usually, like we're all trying to help it out. together. And so we, um, yeah, I technically work with my parents the most.

Scott Benner 12:06
Do they notice that you don't feel well? Or do you tell them?

Dylan Giuliano 12:10
Oh, yeah, I just tell them that. I don't feel good.

Scott Benner 12:13
So if you wouldn't have said anything about your stomach pain, you think they didn't know until you told them?

Dylan Giuliano 12:17
Maybe? Well, I kind of looked pretty pale. So I'm pretty sure they probably could tell

Scott Benner 12:24
from your from your skin color. Yeah, that is the key to everything. When Yeah, when Dylan's when Dylan's pale. Something's wrong.

Unknown Speaker 12:33
Yeah.

Scott Benner 12:35
All right. Dill Pickle. Now let's, um, okay, so because I find that interesting, right? Because as a parent, I know that I try really hard to pay attention to my kids and how they're feeling and how they're acting, right? Because sometimes people will just power through things. You know, they think oh, or you lose track of it. You know, that happens. Sometimes you have a pain. Don't I just burped hold on? Oh, my gosh, I had a little soda this morning, which I never do. And I'm very bubbly now. Excuse me. I'm so sorry. So, sometimes, do you ever burp? Yeah. Do you have one now that you could share with us?

Dylan Giuliano 13:14
On No, no, I usually like never drink soda.

Scott Benner 13:18
Gotcha. I don't either. Diet soda was sitting downstairs, I thought let me be crazy. You know, not not a very crazy person. So it's like, Hey, give me Nazi over here with a diet soda. Anyway, you watch your kids, right? So you know, I do. I don't know what all parents do. I mean, some people might be listening now who are terrible parents and pay no attention to their children whatsoever. I've no idea. But I tried to pay attention. And if you see something happening over and over, you kind of say to your kid like, Hey, how are you feeling? Or I've noticed you're limping. Or why is it you're not using your right hand or you know, whatever it ends up being. And sometimes kids are like, it's fine. It's fine. It's fine. And you have to persevere a little bit and be like, No, I'm still seeing it happen. Like, let me see. And sometimes, they're so sick. They just come to you. And they're like, Oh, my God, I just vomited all over the hallway. Like, do you know what I mean? Like there's, yeah, some there seems to be no. Middle Ground, really. But what I was really interested in was like, how long did you persevere with stomach pain and being tired before you mentioned it? Or did your parents kind of figured out pretty quickly along with you?

Dylan Giuliano 14:24
Um, but maybe, maybe then, like, a day?

Scott Benner 14:29
Yeah. So pretty quickly, they got involved. Yeah. And then do you go right to the doctor, or do they try all the like, regular stuff like, Did your mom say have you gone to the bathroom lately? It was like the first thing she said.

Dylan Giuliano 14:42
Well, actually, um, I've been to the doctor like three, maybe three or four visits.

Unknown Speaker 14:51
And

Dylan Giuliano 14:54
like, yeah, it was pretty crazy.

Scott Benner 14:56
So as always, what happened that you told her you're stomach hurt, and she took you right to the doctor, and then they couldn't find anything. And you had to go back a couple times.

Dylan Giuliano 15:05
But she took me to a regular doctor.

Scott Benner 15:07
Right? Instead of an irregular doctor. Yeah, yeah. So not a diabetes doctor. No, right. I feel like I knew what you meant. But okay, so I had an irregular doctor one time, but that's a different story. So you went to like your regular like pediatrician and you're like, and she's like, hey, Dylan. stomach hurts.

Unknown Speaker 15:27
And um,

Scott Benner 15:28
yeah. Did he like poke you or give you something? Or did he ask if you pooped? Who asked you? If you would have gone to the bathroom? Somebody had to have asked?

Unknown Speaker 15:37
Oh, if I can remember.

Unknown Speaker 15:41
No one asked.

Dylan Giuliano 15:43
I'm trying to remember.

Scott Benner 15:47
I think is the doctor. But the doctor did ask you. Yeah, gotcha. And then you said, Yo, man, here's what's going on. Like it don't come out. Then all of a sudden that comes out crazy. Yeah. How did you say it? Tell me what you said?

Dylan Giuliano 16:04
Well, so basically, I couldn't go to the bathroom for a little bit. So and then I just went to the bathroom. There it goes.

Unknown Speaker 16:14
He said, There it goes. Yeah.

Scott Benner 16:18
That could be the name of your episode. There it goes. Let her fly. Don't pickle. So

Dylan Giuliano 16:26
well, okay. So then what did he do? So actually, it like my, I've actually, it's been holding for a little while. It's like hard to go. So then it probably took like a few days for it to feel better and stuff.

Scott Benner 16:42
So initially, the idea was just like, well, you'll feel better. Like he probably thought you had like a little virus or stomach flu or something. Yeah. Right. So he was just like, oh, that happens to people and you go head home and you'll feel better, but then you didn't feel better. Did you go back to him again, and you go somewhere else?

Dylan Giuliano 16:59
I went somewhere else.

Scott Benner 17:01
Because he wasn't helpful or because your mom started thinking diabetes.

Dylan Giuliano 17:06
Um, well, my mom actually finally talked to the endo, endocrinologist.

Scott Benner 17:11
Ah, and then the endo said, hey, let's do a blood test. Yes, gotcha. So the endo kind of solid for Yeah, signs there because they're very, they're very clear signs of hypothyroidism, untreated, the stomach pain, just like you described is clear. I don't want everybody whose kid tummy hurts not to think they have hypothyroidism. But you know, it's it's pretty. What Dylan's describing what Arden went through is it's severe. And it is, it's noticeable. It's not just a little stomach pain. It's not. And it persists. Well pass, any common sense would tell you that an illness would would last. So. So if people see the signs, you get a simple blood test. And they'll let you know now the hard part and you're just finding out in the beginning is that getting that medication? Correct? is really hard. Like the dose right? Yeah, you going through that right now?

Dylan Giuliano 18:05
I'm kinda Yeah.

Scott Benner 18:08
Have you changed it yet? Or do you think it's working? Are you feeling better?

Dylan Giuliano 18:13
I think I should probably just keep it the same. Just because?

Scott Benner 18:19
Because it's working.

Unknown Speaker 18:20
Yeah. Okay.

Scott Benner 18:22
So can you explain to people after you start taking the Synthroid, and it starts helping you? Like, what's the what's the change from how you felt to how you feel with the medication, I don't think that the blood glucose meter you have should just be the one that somebody gave to you. I think you should have the best, the most accurate, the easiest to use the most pleasing to your eye, the one that fits in your hand, like what fits well, on your hand, you know, fits well in your hand like something if it's holding your hand, it has a beautiful bright light for when you're testing at night, and test trips that allow you to go back to the blood drop a second time, if you don't get quite enough the first time. That saves a lot of test trips, and a lot of hassle. I believe that you deserve a meter that can chart your blood sugar tests in an app on your iPhone or Android phone to give you the data that you need later, to see how things have been going, huh, don't you feel like you deserve that as well. Of course you do. Now, like a dream. It will come true when you go to Contour Next one.com. That's where you're going to find out about the meter. That's where you're going to find out. If you're eligible for a free meter. There's a little button at the top of the page, give it a little click, you might be one of the lucky ones. But if you're not, it's super simple to tell your doctor I'd like to change my blood glucose meter. I've been using this old meter forever. I don't even know if it's accurate. I haven't even ever checked Have you ever looked online to see if you meters one of the really accurate ones or one of the ones where people are like, Well, you know, it's a blood glucose meter? Have you? I bet you haven't. But you know which one of those meters is right at the top of that list. I know you know that I'm gonna say the Contour. Next One. So it's worth a shot. blood glucose meter is an absolutely integral part of your life with type one diabetes, and you shouldn't be using an old busted up one, you just shouldn't Contour Next one.com go there today, there are links in the show notes of this podcast player, and at Juicebox podcast.com. If you can't remember, Contour, Next One. But I mean, the name of the meter, you want the meter? The websites the same? feels like you're gonna be able to remember. Go check it out, get it done. Don't wait. When you think about people helping people, who do you think about besides Dylan today? Who's doing a really wonderful job of sharing his life with Type One Diabetes? What do you think when you think of an organization that's out there? Doing things for people with type one diabetes, do you think of touched by type one? Well, if you don't, you should, you should check out touched by type one.org. They're also on Facebook, and Instagram. And they're doing amazing things for people with type one diabetes every day, not once a week, or six times a month, every single hour of every single day. They're helping people with type one. And they have an overarching goal of finding a cure. So they even donate money to that. This seems like something you'd like to know about, I imagine. And Firstly, all you have to do is make with the typing. Touched by type one.org. There's about 20 seconds of music left, should I cut it off? Or would you like to just bop your head and maybe dance a little while you're vacuuming or whatever you're doing? You know what things have been stressful lately? Why don't we dance?

Dylan Giuliano 22:37
I was actually not as tired pooping regular basically.

Scott Benner 22:42
You weren't as tired? No. Right? And then your your kind of your valves and everything went back to kind of normal using the bathroom the way you expect. Yeah, all of a sudden, all that stuff. So how quickly did it happen after you start taking the medicine?

Dylan Giuliano 22:58
If I could, maybe.

Scott Benner 23:03
Maybe week, a couple weeks, and you felt better? Yeah. That's cool. That's excellent. Any other changes that you have your parents noticed? Like, were you in a bad mood? Or like anything else happening that the medications changed? Or have you not noticed anything else?

Dylan Giuliano 23:18
Yeah, I was kind of like in a bad mood and stuff.

Scott Benner 23:21
Yeah. The people whose thyroids are off can be short tempered, I guess is the way to put it. Yeah. Right. And, and that's another thing you could be looking for.

Dylan Giuliano 23:33
Yeah, I was actually kind of depressed and stuff like that.

Scott Benner 23:36
Yep. I'm glad you're feeling better. That's really cool. All right. So all right, one thing down. And we'll get to the diabetes in a second. But you mentioned something else that is incredibly interesting. Because it's, it's hard to get a diagnosis for. But how are you? You know, how are you diagnosed with fibromyalgia? First of all, tell me a little bit about it. Like what what does that how does it make you feel and how does it impact your life?

Dylan Giuliano 24:02
Like so like, my elbows and arms and stuff for just like affecting so my mom was just like, wait, why is your elbows like so red or something? And so she just took me in. I just had fibromyalgia. So they saw something on your skin. Like, basically, there's like pain all over myself.

Scott Benner 24:24
Okay, but you saw something visibly on your skin like redness? Oh, my elbows. Yeah. Okay. And that's what got and did you have joint pain and that kind of stuff going on? Yeah. Is it in your muscles or in your joints? I know that's a weird thing. But like your muscles hurt. Do you feel weak? Or do you have like pain in your knees and hips and things like that?

Unknown Speaker 24:47
both

Scott Benner 24:48
areas that it happens like that. So you just have sort of like an all over body pain? Yeah, does it cause muscle pain or muscle stiffness to your muscles get really tight like You worked out too much. And they're like, super like in a knot, or do they just hurt in general?

Dylan Giuliano 25:06
Um, they

Unknown Speaker 25:10
kind of both actually

Scott Benner 25:12
do. How do you help that? Like, do you ask people to give you like massages? Or like, how does that work?

Dylan Giuliano 25:19
I just

add on stuff. And just hopefully that goes away and I stretch.

Unknown Speaker 25:27
Stretching.

Dylan Giuliano 25:29
Yeah, stretch and I take Advil.

Scott Benner 25:32
Is that what the doctor asked you to do? Or do you just do that? Because the pain is bad. And you we kind of can't? Do you want to do something?

Dylan Giuliano 25:38
Yeah, I probably because my, um, because I just do it because I feel like, worse and stuff like that. So I usually just take Advil and stretch, and my pain was very bad.

Scott Benner 25:56
Yeah, what's the impact of the pain? That's what I was gonna ask you like, is it does it keep you in bed? does it keep you from doing things you want to do? But how does it affect you?

Dylan Giuliano 26:06
Um, so basically,

Unknown Speaker 26:10
huh?

Dylan Giuliano 26:14
I can't really run around and stuff. Okay.

And Mmm

Scott Benner 26:23
hmm. What happens if you run around?

Dylan Giuliano 26:26
Like my joints and stuff to start to hurt and stuff like that? And I just feel run down.

Scott Benner 26:34
What's the dike? Like? How did they diagnose? Fibromyalgia? Is that a test they give you? Or is it just because? Is it one of those things that it doesn't have a diagnosis, but it's nothing else. So they call it that or how do they do that?

Dylan Giuliano 26:48
I actually don't know. I just saw a rheumatologist.

Scott Benner 26:52
Okay. And that's and so is there's no medication beyond Advil. I don't know. But you're not taking anything is what I'm saying. No. Okay. So it's not like they were like, oh, here's the Fibromyalgia medication like, yeah, diabetes, no, like, Hey, you have diabetes. Here's insulin. They weren't like you have fibromyalgia. Here's this. It wasn't like, Oh, right. So stretch. Is diet impactful. Do you have you changed your diet?

Unknown Speaker 27:20
Yes. How?

Dylan Giuliano 27:23
I'm just eat a little healthier. And then it just started helping thing helping my joints and stuff.

Scott Benner 27:32
No kidding. So what are some foods that you are eating that you're not eating anymore?

Dylan Giuliano 27:36
So I'm actually back then I used to eat some wheat and stuff. But now I'm just good friends. So it helps my joints and stuff. Cool. That's cool. So eating gluten free is helping? Yes. A lot.

Scott Benner 27:50
And are you do you have celiac or No,

Dylan Giuliano 27:53
No,

Scott Benner 27:54
I don't. So it's not for reasons of celiac. It's for reasons of like inflammation and things like that. Yes.

Unknown Speaker 27:59
Yeah. Gotcha.

Scott Benner 28:03
on a day to day basis, is it? Like I know that some people say there's flare ups? Like there's some days that are worse than others? And there's hard to figure out why sometimes, but are you in the middle of a good day or a bad day right now?

Dylan Giuliano 28:17
Right now? I'm in a good

Scott Benner 28:20
pool. And it now if you just got up and went outside and ran a marathon, would it start hurting right away? Or on a good day? Does it not bother you when that happens?

Dylan Giuliano 28:30
Um, it wouldn't really hurt me

Scott Benner 28:33
on this day. Oh, no kidding. But then when it happens, it happens and then running would be bothersome. Yeah. Wow. That sucks, man.

Dylan Giuliano 28:41
But usually when I get sick, it gets like worse. So if

Scott Benner 28:45
you get a cold like a like what they call regular people sick you get to get a cold or something like that. Then that kind of. Yeah, it's worse as well. Okay. Yeah. Any other brothers or sisters?

Dylan Giuliano 28:57
Well, I actually have one brother. He's an older brother.

He is 13

Scott Benner 29:03
Nice. Is he Karl the cucumber? What? No, pickles are cucumbers that are pickled. So I don't know if his name was Carl and you guys call? Nevermind. Dylan? If you're not gonna laugh at my dumb joke. I don't know what to do. It's not is it Chris the cucumber? Like what's his the you don't have to tell me his name. Is he named after any kind of sides? coleslaw? No big potato salad. No, what's his neck? Does he have a nickname?

Dylan Giuliano 29:32
Yeah, so basically, his real name is Anthony. But we like to call my mom and stuff like to call it man. Just because I don't know. Why is he tiny? No. Is he a superhero?

Scott Benner 29:48
I don't know. I thought you're gonna say was Tony the Tiger. I would have been a great nickname for a kid named Anthony.

Dylan Giuliano 29:54
Probably. Probably would.

Scott Benner 29:56
Yeah, if you put me in charge of his nickname. He'd be Tony the Tiger or I'd probably just On boogers, because I'd be lazy about it and want something easy that I can remember. Do you think my daughter enjoys being called boogers?

Unknown Speaker 30:09
Ah,

Scott Benner 30:10
probably not. Oh, I 100% think you're right about that, by the way, complained about it openly. But she does make a weird face at me. When I do it. I actually have a test or something right now I'm texting her get loop green. Her loop is not looping. Do you? What do you how do you manage your diabetes? What do you use?

Dylan Giuliano 30:33
I use and pan and a dexcom

Scott Benner 30:37
Dexcom in Penn. Nice. They're a sponsor of the show.

Unknown Speaker 30:43
You know that?

Dylan Giuliano 30:44
Yeah, I've actually heard it from a couple episodes ago.

Scott Benner 30:47
Thank you. So Dylan, um, no insulin pump. That's cool. Arden's looping. So I'm trying to get out of like right now that there's so there's no connection between her. Her pump and her Dexcom and her phone aren't connected right now. So because of that her the algorithms going back to whatever her standardized bazel rate is. And it's not adjusting her bazel up and down, which has been fine for the last hour or so I've just let it go because it's working. But now all of a sudden, her blood sugar's trying to drift down. And I need the loop to cut her bazel off, but it's not connected. So it's not doing it. Oh, so I've sent her a text and asked her to do that. And whether or not she does that is anybody's guess. But what I need her to do, basically is to turn Bluetooth off and turn it back on. And then it should connect again. So we'll see. So I might have to texture once or twice while we're talking because it seems like she's in a part of the building where she's not getting good coverage, because my texts are going through slowly. So do you are you homeschooled? I actually yeah, I'm homeschooled. And have you been always? Or is that something that started after the diabetes? Or what are you guys doing?

Dylan Giuliano 32:11
It's actually started after the diabetes. Because like I used to get always sick and stuff like that. Like, I probably would get sick like every week. If I can guess it'd be like every week

Scott Benner 32:27
diabetes related or something else?

Dylan Giuliano 32:30
I don't know. Basically both.

Scott Benner 32:33
Do you like it low blood sugars? And it was hard to deal with at school? Yeah. And how do you enjoy? Who teaches you at home? like where do you get your lessons from?

Dylan Giuliano 32:43
Um, well, I get my lessons from my teachers. So, but Well, actually I do k 12.

Scott Benner 32:53
I don't understand. So wait, the school sends you lessons and like your mom and dad help you with them? Or how does that work?

Dylan Giuliano 33:00
So, um, I'm actually in public school. online school. Sorry.

Scott Benner 33:06
Oh, online public school at home? Yeah. Nice. That's cool. You know, you could use Instagram to learn if you needed to. You could just like, between, let me just say this, between cardi B and Drake. I think there's a lot of wisdom in the world. And I think you'd be able to get it from them. I don't. Do you believe in that what I just said or do you think I'm being sarcastic and joking with you always sarcastic? I am being sarcastic. But there there is a lot of good information in the world. It none of it comes from cardi B. I you know, I'm lying. She says some stuff that is hilarious. I sometimes she's talking I'm like that woman is a genius. And, and yet her messages is marred by some some of her tone. Nevertheless, you so you have a so you have an online system. That's through the public school system, but you do it from home. And so when you get up in the morning, like it's super early where you are right now, right?

Dylan Giuliano 34:04
Yeah. 657 right now,

Scott Benner 34:06
like I tried. I was like Dylan, you can do this later. And you're like, Nah, I'm too excited. Let's do it now. And I'm like, that's cool. So you're really excited to be on this podcast, aren't you?

Dylan Giuliano 34:15
Yes. Like I couldn't sleep last night.

Unknown Speaker 34:19
Seriously?

Dylan Giuliano 34:20
Yeah. That's how excited I was. Why?

Scott Benner 34:23
What did you think was like, what was your excitement coming from?

Dylan Giuliano 34:27
I don't know. It's just when I was in your livestream a couple of days ago. So like, I was just like, Yes, I just remembered that was by Juicebox Podcast, so I just got super excited and I couldn't sleep.

Scott Benner 34:40
Is it my fault? You didn't sleep? No. He shorted it sounds like as I went online, you saw I got excited and didn't sleep that I feel like I did this to you know, Oh, is it gonna make the rest of your day like sleepy?

Unknown Speaker 34:54
No, no.

Scott Benner 34:55
So what are you going to study today

Dylan Giuliano 34:58
um, No, actually,

Scott Benner 35:02
who decides? Is that just you? You log on and it's like, hey, Dylan, today you're doing this.

Dylan Giuliano 35:08
Oh, technically. So I have live classes and lessons basically. So like, my live classes are Mac era science and history.

Scott Benner 35:20
So Dylan, let me make sure I understand you sit in front of a computer where you see video of a classroom happening. Kinda like can you interact with it?

Dylan Giuliano 35:30
Sure. So it's like,

these teachers are actually talking to you on mics, and they're like, teaching you some stuff. And it's pretty cool. Actually.

Scott Benner 35:43
It's insane. I had to get up and get on a bus. And then a Dylan, I'm gonna tell you right now.

Dylan Giuliano 35:50
So basically, it's actually after PowerPoint. It's PowerPoint. Okay.

Scott Benner 35:54
Okay. So like they did. It's a presentation about that. And if you have a question, you can be like, yo, just now on number five. I don't understand. Stop. Go back and explain it. Yeah. Okay. Yeah. You have interaction with somebody? Yeah, I don't do you want to hear about my walk to the bus stop. out of my house right? down this long Hill. Then I got to make a left. Then I walk a full block. Right. Then I make a right, a right. Make a walk another full block. Then I make a left walk three blocks up over a big hill. That was my bus stop. It took me 20 minutes to get to my bus stop every morning. Wow, one cared about children in the 80s Do you understand? No one. No one cared. They were just like, they were like, Look, if that one dies, it dies, whatever. You know, like there's more kids. Nobody protected children the way they do now. And then it would be raining. And you know, and you would just go out and just be like, Oh, I'm gonna get soaked going to the bus stop. Don't be so all day long. And you know who will care Dolan? Who no one I just explained it to you. No one cared. Okay, so you get to school your shoes were soaked. Your jeans were soaked. What would you do? If you got to school and you were stuck? You would go tell somebody? Hey, look, I'm all wet. I gotta call my mom. Right? Yeah. That's not what happened in the 80s. Dylan in the 80s. They'd go, no one cares. Go back and sit down and don't get the floor wet. And you'd be like, how am I gonna get the floor wet? I'm dripping like a wet towel. Right? No one. Yeah. Different World. Different World. Dylan. I'm telling you right now. You live in a golden age of being a kid. Did it stand. There's you're at home right now because you don't feel well. And you get to go to school online. If I didn't feel well, when I was little. You know what my dad said? What? Nothing because he had left for work hours before school started. And he didn't not to put too fine a point on it. What done? What did my dad do?

Dylan Giuliano 37:51
did nothing. Yeah,

Scott Benner 37:52
right. He didn't care. He didn't give it. He was like, yeah, that kid will grow up. It'll get a job. Whatever. You don't I mean, like, right. Your mom and dad care about you. Look at all the effort Your parents are putting into helping you feel better. To make you a keep you educated. It's really cool. I really am really impressed that that with all these I mean, because you're having a lot of dealing. Can we curse you and I together just a little curse? Do you cry? Sure. I'm fine. You do? Yeah. I'll bleep this out later. But you're going through a lot of you don't I mean, like you got diabetes sucks. This fiber mile just sounds like a headache. And then you and then the hypothyroidism I know from Arden is not fun. And, and and you're dealing with all this stuff. You got a great attitude. And on top of that you're trying to help other people. Yeah, dude, why are you such a nice person? I don't know who just happens natural. Yeah, yeah. Good for you. That's nice. I'm a nice person to people don't think it. My wife, people, my wife always be like, isn't that woman nice? I'm like, I'm nice. You never hear anybody say it. And she's like, it's because you're saying it. I'm like, man, I don't think that's why I think people don't think I'm nice, but I am. But you're really you're superduper double nice. So to see. You're welcome. That's how I know you're nice. You thanked me for saying something nice about you. I would never do that. If you said something nice about me. I tried.

Unknown Speaker 39:18
I'm here.

Scott Benner 39:20
You're a nice guy. I'll see now I say thank you because I feel pressure. But in the past, I would just say of course I am done. You're 100% right. You know, I'm just kidding. I wouldn't say that. It is a it is a very good thing you're doing trying to share your life and I want to talk about that a little bit as much as you're comfortable. So you have a Facebook page. You have like the YouTube you're a kid you probably probably have everything right? Like you have different like pathways to people. Yeah, I need to share your life with Type One Diabetes, right? And talking to people about what's going on and everything and first of all, are you enjoying doing that?

Dylan Giuliano 39:56
Yes. I very enjoyed it.

Scott Benner 39:58
What about it? Is, like rewarding.

Dylan Giuliano 40:02
I just like to educate people and tell people about like, type one and stuff.

Scott Benner 40:08
That's very nice of you. Now, we're gonna curse again and again, it'll get bleeped out. Okay, some of

Unknown Speaker 40:16
you online.

Dylan Giuliano 40:17
Yes, like I got bullied a lot of times.

Scott Benner 40:21
And is this from people like that you can actually see like, you know who they are like, are they adults? Are they kids?

Dylan Giuliano 40:28
I honestly don't know. I can't tell. No.

Scott Benner 40:32
Okay, so So are they, you can't tell if there's somebody who has diabetes who's like you're doing this wrong, like, what do they What have you what has been said to you in the past? I hope this isn't hard to talk about, but what is it what has been said to you?

Dylan Giuliano 40:44
So basically, actually, I think they're most mostly adult. So like, many people like this, there's just one lady who said, who told me, I don't know how to, like, take care of myself. And like, like, when I was in the hospital, they said, Oh, I thought you were low carb. And you should probably stay healthy again, and stuff like that.

Scott Benner 41:07
So someone just kind of like came at you when you ended up until you're trying to share with somebody, hey, I'm in the hospital. Now this is going on. And instead of them saying, Oh, I hope you feel better. Someone actually said, Oh, I thought you were low carb. This shouldn't be happening to you, or you should get back to that or something like that. So that seems like a good time to again, remind people how old you are. Don't I'm 12? Yeah, it's a good time to tell a 12 year old they're making a mistake, because you're completely in control of your life. Right, Dylan making all your own decisions. Your parents have nothing to do with it. No, of course not. You're a kid. Right? Right. Like you. You just you're rolling along doing your best, everyone's doing their best and you're trying to share. Now, let's discuss what kind of a monster would say something like that to a 12 year old? What did you imagine in your mind when you looked at it? You know what? No, no. What was your reaction? When that was said to you? How did that make you feel?

Dylan Giuliano 41:56
I just felt very sad. Because an emotional because, like, I've never had that happen to me before. Like, I was probably like my first time that ever happened. So I just got very sad and stuff. No,

Scott Benner 42:09
no, I'm sorry for you seriously. And I am going to, I'm going to try my best right here to give you some guidance that I think will help you because if you're going to keep sharing with people online, like this are some things you're going to have to understand. And I have a unique perspective on this. You have come to the right place, Dylan, this is your online class today on dealing with people who feel like they have an input into what you're doing. Okay. Okay. So you're in an interesting situation. You are sharing stuff online. So you are putting yourself out there, you're opening yourself up to anyone's interpretations, desires to speak to you, right? So yeah, you've taken that risk. And so that's something you've done on your own, I'm assuming with your parents, I assuming your parents understand what you're doing online, and they're okay with it. Right?

Unknown Speaker 42:59
Yeah. Yeah.

Scott Benner 43:00
Right. Okay. So, you've done that. That's your decision. You've put yourself out there. What you have to realize from there is that not everyone is going to jive with what you're doing. Right? So you're going to talk to some people who you're going to hit right in the heart and they're going to be like, I love this Dylan kid. You know, like, I love what he's saying. I love what he's trying to share. I'm with this. Those people are going to be you know, for the lack of a better word fans of what you're doing. Now, there are going to be some people who don't agree with you. Now, when those people are mentally healthy, they just won't pay attention to you. Right? Like, like, for instance. Do you like baseball? Yeah. Okay. Do you like football? Yes. Do you like soccer? Yes. Like, ah, do you like ice hockey? Huh? Do you like ice hockey?

Dylan Giuliano 43:52
I'm not really big fan of ice hockey.

Scott Benner 43:54
Okay, so do you watch baseball games on television? Yeah. Do you watch ice hockey games on television? Yeah, you do or you don't? kinda guy but you don't love it? No. Okay. So if I put a baseball game up at a hockey game up, what would you watch? Probably a baseball game. Okay. If you decided to watch the baseball game instead of the hockey game, would you then send an email to the hockey game and tell them you suck? I'm not watching you. I'm watching baseball instead. No, ah, why would you not do that?

Dylan Giuliano 44:25
Because it's just disrespectful. I mean, and unnecessary.

Scott Benner 44:28
And Dylan, let me say insane. It's absolutely insane. Why would you I don't understand why someone would take the time to let someone know I don't watch your thing. I don't get I don't get that. I don't understand why someone wouldn't see you online and if they disagreed with you or didn't like the way you presented yourself or whatever, why they wouldn't just think Hmm, well, this is the thing I won't follow anymore. And I'll unfollow this. Why is it that they need to Do they feel the need to jump in? And give their opinion?

Dylan Giuliano 45:05
I don't know, like many people, just like, make fun of me because of my videos and like on YouTube and Instagram and Facebook and stuff like that for all for basically.

Scott Benner 45:17
So that's happening, what keeps you doing it? Why do you keep doing it?

Dylan Giuliano 45:21
Well, I can just push away the bullies and just stay positive and try my best to ignore them. And I just block them. And just keep going.

Scott Benner 45:34
And because there are probably plenty of people who are enjoying what you're doing, and they're getting something out of it, right? Yes. Excellent. That's right. Like

Dylan Giuliano 45:41
many people are just like, Oh, my gosh, you're thanking me so much. You're helping me a lot and stuff like that.

Scott Benner 45:49
So there are people who relate to you. And those people are being genuinely helped through just the community really just feeling like they're not alone, you know. And that, did you hear the episode with Tommy?

Unknown Speaker 46:03
Yes. And Tommy's

Scott Benner 46:04
more your age. Right? Did you enjoy listening to Tommy?

Unknown Speaker 46:07
Yeah. Cool.

Scott Benner 46:09
Now, do you think that a 55 year old guy would enjoy listening to Tommy as much as you did? Probably. Yeah. I think so too. I think people's stories are universal. And I think that if you really stop and listen, that you'll hear something, and something that's being said, that's valuable to you. And that's very cool. And I think that those people could find that with you, too, if they wanted to. Instead, they want to be mean, I guess, and and I don't know why that would be I also, you sometimes also run into people who are like, Hey, here's what you should be doing. Here's what you're doing. But this is what you should be doing. Have you had Yeah. Have you had that one yet? Yeah. Yeah. So they think you have some sort of a spotlight on you. People are paying attention to you. And they want you to be saying something different than what you're saying. Yeah, yeah. You know, what those people should do? What What do you think they should

Dylan Giuliano 47:07
just leave? Don't come back or something? Yeah,

Scott Benner 47:12
they should either start their own thing and say what they want to say and see if people will follow them. Where they should shut up. Because, right, because what is the point you only have your perspective to share? That's Oh, yeah, that's all you have. I can't, I can't come on this podcast and be somebody other than who I am. Mm hmm. So I will share with you. Because I know this has been hard for you. And I know you like the podcast, that I get emails once in a while and notes from people who are like, you're not doing a good job with the podcast. You should Yeah, you should be doing it like this. You did you made this decision and not that decision. I'll tell you one thing that people don't know, don't is that sometimes guests come on the show. And they're nervous. And they don't speak the way that makes it interesting to listen to, sometimes there's slower, or they kind of, you know, they don't maybe have command of their thoughts the way they thought they were going to when they come on. And when that happens. I jump in and talk more. Okay. And I think that that's noticeable for most people. Like I think when people listen, you go into Scott talked a little more this week, the news last week, probably a reason for that. But every once in a while, you'll get a note from somebody who's like you talked over that person and didn't let them speak. And what I want to say to them is Listen, I was doing what I thought was best there. If you don't agree. You're welcome to buy a computer and software and get hosting and a microphone and a processor and make your own podcast and edit it and put it up and find people to listen to it and see if you can do something that you would be interested in. Because, wow. Right? Because that's all this podcast is honestly, it's something that I would be interested in listening to. If I was looking for a podcast about diabetes, I am not here to make bland content that everyone's going to like because there are people who do that. And those podcasts aren't very popular for a reason. So I like you being unique. I like you doing your thing. And the people who love it. Love it and the people who don't. That's okay, too. Yeah. Good for you. How do you get so strong in this scenario? Like seriously? I, I am. I've had practice. Like I wrote a book A long time ago and some people really liked it and some people didn't like it. And that was my first real practice and being like, wow, not everybody's gonna like everything. I say, Okay, I have to be okay with that. But you're 12 you're living with diabetes, fibromyalgia, hypothyroidism. And on top of that, some people come along and they're they're not nice to Like how did you find the like, where do you find the goodness inside of you to like, just deal with it so well?

Unknown Speaker 50:05
I don't know.

Scott Benner 50:08
You're supposed to say good parenting there. That was for your mom I set you up there don't so you know my parents have raised me really well. Good deal and how did you find the kindness inside you to deal with that so well,

Unknown Speaker 50:19
I

Scott Benner 50:22
actually don't know Dylan take three. When I asked you the question. You're gonna say it's great parenting. My mom and dad are beautiful people ready? 123 Where do you find the goodness inside of you to do that? So well.

Dylan Giuliano 50:31
Great parents. I agree

Scott Benner 50:33
with you man. Good parenting is always the key. You know, amen. Just really people who have your best at heart and they're looking forward to you're really filling you full of goodness in life. So you can give it back out again. That was for your mom and because she's gonna listen to this, okay.

Unknown Speaker 50:47
Okay,

Scott Benner 50:47
kids never understand. Every once in a while, man, you got throw a bone to your mom. You know what I mean? Like just the text message during the day. Hey, Mom was thinking about you. Hope you're having a good day. Boom. Perfect. I'm telling you don't know how to do it. You got to do it like that. Even just your role, Pastor. Is she in the house with you now? Yeah. Let me tell you something right now, though. At some point today, not as soon as you get off our show. Now. Out of nowhere, you make eye contact with your mom and you go, Hey, mom, and she looks over at me. She goes, Hey, Dell. And here's what you said. I just want you to know I love you. And then she goes, Oh, thanks, buddy. Come give me a hug. And she'd be like, Yeah, come over, give her a nice hug. And you move away made her day.

Unknown Speaker 51:28
Right? Yeah.

Scott Benner 51:30
Now you do that today. And like months from now, she's gonna hear this podcast, and she's gonna be like, that's why that kid hugged me that day. You know, right, right. Yeah. But it's, but it's seriously a nice thing to be kind to other people. All right. I joke. I joke around a lot on this podcast, I'm sarcastic. And I do that for a number of different reasons. It's a pretty purposeful when I'm doing it. And and yet I am, I have a real kindness inside of me that that doesn't reflect in sarcasm. I really, I want just like you do to share something with somebody that might help them. And so yeah, have you ever shared something with somebody that you've seen reflected back? Like, they've come to you and said, You've helped me and how does that make you feel?

Dylan Giuliano 52:16
I think it feels like, great. When you

Scott Benner 52:20
get that kind of response back and you get that great feeling is it like, I'm happy to have helped someone, or, or I feel badly and I just need to feel a little better for a second. And it's nice that I was able to do something that this person liked. And I get to feel good about myself for that. Like is it all of that none of it, some of it?

Dylan Giuliano 52:41
All of it. Because when I actually grow up, I'm actually going to be an endocrinologist

Scott Benner 52:48
for type one, so that's why I'm kind of getting the hang of doing my page and stuff. So you're trying to teach yourself how to talk to people with diabetes, so that one day you can become a doctor and help people with their diabetes. Yeah, that's pretty thoughtful. I didn't plan ahead like that in life. And that's like, I have a podcast, but no, sorry. But, but so that really occurred to you like I'm gonna like, I'm gonna learn how to talk to people better. Now, where did that come from? Do you not like the way you're spoken to about your diabetes? Or do you wish it was different?

Dylan Giuliano 53:27
i? I don't know.

Scott Benner 53:30
You don't? Do you have any feelings? Like when you're talking to the doctor that you're like, I wish this guy understood better? Or I like the way they're talking to me. Do you ever leave? Feeling like you wish your appointments would go differently for you? Or do you not really think about it that way?

Dylan Giuliano 53:45
My doctor is great, though.

Scott Benner 53:47
Yeah, really cool.

Unknown Speaker 53:49
Yeah, nice.

Scott Benner 53:50
They let you steal rubber gloves and blow them up like balloons. That's what that's what we do when we're waiting too long, or that I play. Like volleyball with a rubber glove, we blow it up. And then she sits up on the examining table. They sit in the chair and we just bounce it back and forth to each other. It's how we pass the time waiting for the doctor to come in. But it's very cool that you have a doctor that you really like. Yeah, yes, a lot of people don't get that. And so it's nice that you have it. So what's your favorite thing in school? Like what's the what's the thing that you do online that you've enjoyed the most? Like, what are you the best at is it math or?

Dylan Giuliano 54:28
i? I like science and math.

Scott Benner 54:32
Yeah. Yeah, not so much the writing and the history.

Dylan Giuliano 54:37
Not really.

Scott Benner 54:38
Not right. You don't want to know what the Bolsheviks are doing? Or we're doing hundreds and hundred. No, you're not worried about that. So much. I watched Arden's writing a history paper right now on the Cold War, and she doesn't seem thrilled. You have a couple of years before you're gonna get to something like that. But yeah, she doesn't seem to be thrilled at all. Um, have we ever met You and I,

Dylan Giuliano 55:01
I think yeah, I think we have I mean, summit. You were there, right? I feel like

Scott Benner 55:07
you weren't like it's the type one nation summit. No. Were you listening to the podcast back then when you met me? Or is that where you figured out to listen?

Dylan Giuliano 55:14
I kinda.

Scott Benner 55:16
That's about when you started listening. Yeah. Let's What do you like about the podcast?

Dylan Giuliano 55:22
I just like to hear people with type one. Tell about their feelings and stuff. Nice. Because I went to my agency went to 7.8 6.9.

Scott Benner 55:37
Wow, from listening to the podcast. Yeah. No kidding. You should probably send me some money in the mail or something. I'm kidding. I'm 100% joking about that. I although if one day, there's a diabetic, they'll pick a T shirt. Maybe I would like to get one of those. But we'll see if things blow up enough. You know, they mean, by the way, if you become an endo, Monday, how are we going to keep the pickle for it? Same going for that?

Dylan Giuliano 56:05
I don't know. I'll probably just keep it going and stuff like that.

Scott Benner 56:11
I have a question. And I'm being serious. What do you like pickles? Yes, you do that? Do you prefer a dill like a spear? Or a bread and butter? Kind of like a sandwich style pickle? Or what's your favorite pickle?

Dylan Giuliano 56:24
I kind of like dill. Yeah. Like, don't people

Scott Benner 56:28
eat him right out of the jar? Do you want them along the side of a sandwich or on a sandwich we're looking for?

Dylan Giuliano 56:34
I don't know. I'm kind of like both.

Scott Benner 56:37
You anyway, you'll do it? Yeah, there's no way that you wouldn't be like, Hey, have you ever passed on a pickle? Have you ever looked at and said, I don't like a bread and butter pickle? No, thank you. No, no, there's no, no one that you've ever seen that you haven't? Like? No, I'm going to share something with you now. I don't think I've ever had a pickle. What I mean, I'm sure I've been into one into a cheeseburger once or twice that I didn't realize was there. But I would recoil immediately and get rid of it. Wow. Yeah. I don't know. I'm not a pickle person. But I defend your right to love pickles. By the way. Very cool. don't I? If we not covered anything you were hoping we talked about? Like, are you sitting there right now going? How come? He hasn't asked me about this?

Unknown Speaker 57:26
Huh? No, no.

Scott Benner 57:28
Well, if people don't like this episode, and they send me an email and say I did a bad job. What would you say?

Unknown Speaker 57:38
You just blocked them, wouldn't you? You'd be like,

Unknown Speaker 57:41
yeah, call block.

Unknown Speaker 57:41
Do

Scott Benner 57:45
Yeah. So is it? How does it if you block I've never blocked somebody before. But if you did that, does it make you feel bad that they didn't get something out of it? Or do you feel like goodbye soccer? Like, which? How do you make you feel?

Dylan Giuliano 58:01
Like I kind of feel sad? Because like, they were kind of like rude. and stuff. I just had to block them.

Scott Benner 58:13
Do you think there'd be a way for somebody to say something to you? That wouldn't have been rude, where they could be like, hey, Dylan, you know, I really, I love what you're doing here. But one time you said this. And now you seem to be saying something different? And it's conflicting? And I don't understand or like, like, would you have a conversation with somebody if they were just confused?

Unknown Speaker 58:32
Yeah, yeah,

Scott Benner 58:34
I do that sometimes I send emails back sometimes I'm like, Look, I feel like you might be just don't understand what's going on here completely. And, you know, I can't really explain it to you. But if you can just accept that, you know, there was a reason that that happened. And that that kind of thing. It's a very weird thing to have a one way conversation with the person because they'll know the thing you might not realize that I'm starting to realize more and more from the podcast is that people listening to you or reading you feel like they know you a little bit. And then when you do something that they don't expect, it feels wrong to them. But what I would say is you're just doing you and that's why they were looking in the first place. So yeah,

Dylan Giuliano 59:19
I just feel like they aren't they they're rude. And I just tried to chalk talk to them.

Scott Benner 59:27
Yeah, good for you. And then if they don't listen, come block. Done. Yeah, smack them in the face with a pickle. Yeah. If you were going to if you were going to throw a pickle at somebody, what kind of pickle would be the best pickle to throw? I have my answer. I don't know. I think Paul. Good. Good. What do you got? Which one?

Dylan Giuliano 59:51
Probably does a Sally's like hot pickles. Oh,

Scott Benner 59:56
it's it's you'd fling you'd fling a spicy pickle at somebody. If you were gonna do Yeah, see now I was thinking immediately, you know, those little like girkin like the little tiny like solid, like maybe into too long and thankfully, I feel like I get your, like pointer finger behind it and really kind of like with a madam. You know, like boom. And then like because and they wouldn't hurt anybody but they hit they'd be like a little like, like a little thud like on their forehead. You know what I mean? Like, I think that would be fun.

Unknown Speaker 1:00:22
Yeah, yeah, yeah.

Scott Benner 1:00:25
Okay, throw in pickles is definitely bites it does sound like fun to me throw a pickle at somebody.

Unknown Speaker 1:00:34
It does,

Scott Benner 1:00:36
although the little sandwich style ones that are kind of cut in slices. Like now I'm like, you can kind of frisbee them. You know what I mean? Like, like, maybe because they're wet. They'd like sit and stick like now I'm imagining just like, sticking pickles to someone's like forehead. That's all I don't I hope I haven't let you down. I don't know. I know. You want to come on so badly. And I it's hard to know what to talk about sometimes. And I did. I did my best to to make this fun for you. Did you have fun?

Dylan Giuliano 1:01:05
Yes, I had a ton of fun. I just appreciate you putting me on this podcast. Thank you so much.

Scott Benner 1:01:11
It's my pleasure. What would you want? I guess if there's one thing about diabetes that you wish people knew what what would it be? How to handle it? You just wish they knew better? How to help themselves? Yeah. Do you struggle to help yourself? Sometimes? Yeah. Yeah. And and so any information coming in from the outside? is valuable? You think? Yeah, yeah. Cuz then you can take it and sort of like, mold it to yourself and and take some ideas that work for you and leave others behind that you don't like and and find a process that works for you.

Dylan Giuliano 1:01:49
Yeah, out awesome. And people would probably be much nicer and stuff.

Scott Benner 1:01:55
You think if they're okay, hold on a second. So you think that Do you believe that some people are struggling with their diabetes, and therefore maybe they lash out in different ways? Yeah, yeah. So you're looking for people to have a more harmonious life? All over?

Unknown Speaker 1:02:15
Yeah, yeah.

Unknown Speaker 1:02:16
Okay.

Scott Benner 1:02:18
I understand. Dylan. What do you do for your mom today?

Dylan Giuliano 1:02:25
Um, listen the eyes. Tell her I love you and give her a hug right out of

Scott Benner 1:02:31
nowhere. Oh, Dylan. Hold on. People are calling. Let me see what's going on here. This is like a bad call, like, you know, like, they try to sell you like solar panels or something like that. Yeah. So it's what I'm getting right now. I didn't mean to let that interrupt you. I'm so sorry. And do it out of nowhere. hours from now, like, hours from now. Just boom, get a make her day. She's gonna like she'll get in bed tonight. And she'll be like, she'll say to your dad, she'll go. You know, at some point today, Dylan just came up to me and said he loved me and gave me a hug. It was so nice. She's gonna be all like Wi Fi and everything and feeling really good about it. Right? And then, like, essential, listen to this later and should be like that little kid. He didn't mean that. But you would meet it if you said it, right.

Unknown Speaker 1:03:10
Yeah, so

Scott Benner 1:03:12
what am I telling you like everyone smile for anybody listening? Let's do it this way down. Whether you're 12 years old, I'm 48. Right? anywhere in between. If you have access to your parents, give them a call. Say hi to him. Tell him you love him, right? Mm hmm. There's people out there. They're breaking their butts for you. You know, these people? I mean, are you wearing pants right now though?

Dylan Giuliano 1:03:33
Um, yeah. Who

Scott Benner 1:03:35
paid for those pants?

Unknown Speaker 1:03:37
My mom and dad are out

Unknown Speaker 1:03:38
there hustling for you? Do they feed you? Yeah, every day. Yeah. How much food costs?

Scott Benner 1:03:45
super expensive. Unbelievable. They get you that medicine. They take you to the doctor. Um, you see what I'm doing for these kids over here? in grades? You know what I mean? Right. Like, just once in a while hug would be nice. Just to like, Hey, are you you know how many? How many pictures of yourself? You're a kid on the internet? How many pictures of yourself that you taken a week? 100?

Unknown Speaker 1:04:06
Maybe?

Scott Benner 1:04:06
Yeah, send one to your mom once in a while. Be like, yo, look who's here. Dylan who loves you? Right? Plus, you don't want to know like you don't want to like Carl the cucumber better than she likes you. Do you? Hey, if you call your brother Karl the cucumber? Is he gonna punch you or no?

Unknown Speaker 1:04:26
Probably.

Scott Benner 1:04:28
That'll just be between me and you. And the countless 10s of thousands of people who are listening to this. Okay. But don't let Don't let him know. Okay, Dylan, you're a good kid. Man. I really appreciate you doing this. Thank you so much.

Dylan Giuliano 1:04:41
You're welcome. Thank you for inviting me on to the Juicebox Podcast. I appreciate it. I really

Scott Benner 1:04:47
I that means a lot to me. I'll tell you what, do this before we leave. Take a breath, get yourself centered, and say Hi, this is diabetic. They'll pickle and you're listening to the Juicebox Podcast.

Unknown Speaker 1:05:00
Okay,

Dylan Giuliano 1:05:08
because this is doing diabetic to pickle and you're listening to the Juicebox Podcast.

Scott Benner 1:05:14
Very nice. Do it again real fast.

Dylan Giuliano 1:05:17
Hello, this is dialectal pickle and you're listening to the Juicebox Podcast

Scott Benner 1:05:21
doing I really appreciate that. A huge thank you to Dylan for coming on the show and being so honest about his fibromyalgia, type one diabetes, troubles, he's gone through online sharing with people, everything. I mean, guys, he was 12 when he recorded this, check him out on your favorite social media place. He's diabetic, dill, pickle, DUI L and then pickle is spelled like, you know, people spell pickle. All right, what else? Oh, a couple nice things you could do here. Check out touched by type one.org. And go to Contour Next one.com to find out if you're eligible for an absolutely free blood glucose meter, and not just a blood glucose meter, the bestest one that they have. And by they, I mean the world. It's the best one in the whole world. In my opinion. My opinion counts, so does yours. So go see what you think. I just want to say here at the end, that I very much appreciate that you're listening. And that many of you share the show with other people who you think will, you know, find it valuable or helpful or fun? I don't know what you think. But when you think it and you share, it makes me feel warm inside. So thank you very much. Expect at least one more show this week. Maybe two. Hey, those of you who are new to the show and think you're caught up, head back into the archives see what else you can find. There are over 350 episodes of the Juicebox Podcast. Some people who you're listening with have heard every one of them. Don't you want to be one of those people? I want you to be one of those people. Seriously, though, there are a lot of great episodes back there. I hit somebody sent me a message the other day and I'm like, I don't understand why you haven't talked about this. And I was like what what do you mean? And then I asked him how long have you been listening to the show? She's like three months. I talked about that three years ago you got to go look bingeing isn't just for Netflix.

support the sponsors

more juicebox

#1748 Tandem Kids: Oliver

#1747 Tandem Kids: Adelaine

#1745 Icky Sticky

#1744 Life Coach: Empty Nest

#1743 Penny Drop - Part 2

#1742 Penny Drop - Part 1

#1741 Body Grief - Part 1

#1740 Bolus 4 - Potato Chips

#1739 Smooth Operator - Part 2

#1738 Smooth Operator - Part 1

#1737 Gesundheit

#1736 With Haven

#1735 To The Moon And Back - Part 2

#1734 Defining Diabetes: Priming

#1733 To The Moon And Back - Part 1

#1732 Squooshie Pushie

#1731 Medtronic for the Win

#1730 Fat Beagle

#1729 Cinderella Story - Part 2

#1728 ADA Standards of Care for 2026

The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here. Recent donations were used to pay for podcast hosting fees. Thank you to all who have sent 5, 10 and 20 dollars!

Donate

Scott Benner 7/3/20 Scott Benner 7/3/20

#352 Defining Diabetes: Rage Bolus

Scott and Jenny Smith define diabetes terms

Defining Diabetes: Feeding Insulin. Scott and Jenny Smith, CDE define the terms that are at the center of your type 1 diabetes care.

Check out the Diabetes Pro Tip episodes and Juicebox Docs

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
This episode of defining diabetes is brought to you by Omni pod, the tubeless insulin pump and dexcom, makers of the dexcom g six continuous glucose monitor. Find out more at my Omni pod.com Ford slash juice box and dexcom.com Ford slash juice box on the pod we'll even send you a free no obligation demo in this episode of defining diabetes, Jenny Smith and I will be defining rage bolus. Now you know Jenny, she's an all the pro tip episodes and defining diabetes and ask Scott and Jenny. She's also a person who's been living with Type One Diabetes for over 30 years. Jenny holds a bachelor's degree in human nutrition and biology from the University of Wisconsin. She's a registered and licensed dietitian, a certified diabetes educator and a certified trainer on most makes and models of insulin pumps, and continuous glucose monitoring systems. Jenny services are for hire, check her out at integrated diabetes.com.

We're gonna get started in just a moment. But before we do, please remember that nothing you hear on the Juicebox Podcast should be considered advice medical more otherwise, please always consult a physician before making any changes to your health care plan. or becoming bold with insulin.

Do you have an absolutely spectacular endocrinologist certified diabetes educator diabetes, nutritionist if you know anybody who's helping you with type one, you have one like that, that you'd love to share with other people. Where are you looking for one that fits that description? Check out juice box docs.com. If you do JUIZBOXD OCS It's a place where I'm collecting an amazing list of fantastic support for people with type one diabetes. It's absolutely free. If you have somebody great to add, check it out. If you're looking for somebody, check it out.

Unknown Speaker 2:31
Rage Bolus.

Scott Benner 2:33
So I know that that

Jennifer Smith, CDE 2:36
hasn't rageful I mean, everybody has

Scott Benner 2:39
just like, at some point, you look at your blood sugar or someone else's blood sugar you're helping and you're like, damn it. I just don't care more, more and more. And it's always and when you rage bolus, the idea is that you know you're putting in more than you need, because you're just trying to crush the situation and you're willing to live with a low later to stop what's going on right now. Is that how you think of it?

Jennifer Smith, CDE 3:02
Oh, yes, I you know, a rage Bolus is a you know, even if it's mostly on a subconscious level, like you're not really acknowledging but you're like, I'm just take five units right now because I'm so tired of this like high blood sugar. And I know five units is too much like subconscious level. I probably only need the two units that my pump is recommending. But I just want this blood sugar down. And I'm not waiting six hours for it to happen. I'm gonna do it. Now. It's gonna work right yet.

Scott Benner 3:31
Yes, I Jenny's not wrong. I've done it. She's done it. Everybody has done it. It's actually interesting, because I've got a chance to wear a glucose monitor for a little bit. I think my body does it sometimes too. I it's very interesting. When if I eat too much simple sugar. My body appears to push back harder with insulin than it does if what I've eaten is more balanced. Yeah. Oh, it's so fascinating. But But anyway, taking me out of it and keeping it with people who are using you know, manmade insulin. When you hear someone say I rage Bolus, that's what they're talking about. They're talking about they had a high that they just couldn't do so they hit it with more insulin than they knew it needed just to make it go away. Now, there are great reasons why you could have a high stuck blood sugar. And I again think that if people listen through the pro tip episodes, they might not get into that situation is frequently I have to say that you know now for art and you know if I'm raged bolusing and now I'm making quotes, it's for like a blood sugar. That's 180 that won't move. You know, like no line. I don't rage

Jennifer Smith, CDE 4:43
Bolus is not like 10 units for that no, a lot less because you're starting at a lower high

Scott Benner 4:49
rate really crazy rage balls for us at this point would be three units now. Right But back when her blood sugar was, you know would go to 300 and sit there and I'd stare at it and be like, I don't know what's happening. But it was a lot more insulin than I was just like more and more and more. And then, you know, suddenly you're like, oh god, I gotta catch it with food. And it turns into a whole thing. But my reasoning for wanting to define it is because I think that people use the term when they use it, like in community or online. It's it's fairly accepted that this is something that has to happen. And I do believe that once in a while, you're going to need to do that. But if you're doing that constantly, again, that's a signal that something's wrong, you know, somewhere else. And so please,

Jennifer Smith, CDE 5:40
salutely, right. It's just kind of like you're bumping nudge? Yeah, if you're doing it occasionally, that's the purpose. If it comes into use every single day, there's something that's not right. It's just not right. And

Scott Benner 5:53
you and you can do something about it. I did something very uncommon for me yesterday, I saw a person in a Facebook group that was not my facebook group. And they said that they were getting low to the point of passing out every day of their life. And I just was like, I can't, I can't walk past this,

Jennifer Smith, CDE 6:13
I need to help you. I said,

Scott Benner 6:14
seriously, I can't do this. So I jumped in. I said, Look, I'm very sorry for sharing my content in here. I'm like, but this is diabetes, pro tip calm, you go listen to those episodes, this isn't gonna happen to you anymore. And so I couldn't, I couldn't leave, I just couldn't walk away for I actually felt like I saw a car accident, and the car was on fire. And I thought I might die. But I gotta try to get this person out of here. Because on social media, sharing your own content, and somebody else's place is a lot like risking your life because people can turn on you. You know, but I just couldn't, I could, I couldn't walk away from it. So I feel the same way about rage. bolusing it's, it can really be dangerous to you. And so absolutely, right. So the best way to I know I say these stupid things, but the best way to not get it you know, to not have the rage of all this is the knockout. Hi, which is like now people are like, yeah, thanks, idiot. I know, but,

Jennifer Smith, CDE 7:09
but I'd like to not get high either.

Scott Benner 7:12
Wow, do you have a don't get high episode jerk. But, but turns out I do. So, you know, I don't want to see you in that situation where you're constantly racing, but you understand what it means now. And that's the first step to enlightenment, which sounded way more high minded than I meant it to.

Jennifer Smith, CDE 7:32
We'll also talk so much about rage. bolusing and I think that there's also the opposite of it. But there's no defined like, like term for it like rage. bolusing It's not like rage carving, like when you're affecting like a low blood sugar with this amount that you know is way too much. Like even in your low brain of like fuzziness. You're like, Oh, yeah, if I eat the whole bag of taffy, that's probably gonna make me be 300 but you know what? I'm so low right now. I'm just gonna

Scott Benner 7:59
doesn't matter. And that doesn't matter. You'll get a little bonus definition here. Is that eat the kitchen?

Jennifer Smith, CDE 8:05
I that would be

Unknown Speaker 8:08
it? That's right. Yeah, the kitchen is how

Scott Benner 8:10
I hear people talking about it. Like I felt like I could have eaten everything in the kitchen. Or eat the refrigerator, fridge. The fridge, right? There's other ways to think about it. It's interesting as you describe that, I know you have to go but I really just recognized how that's one of the separation points for me not having diabetes. Like there's I have no context for that. I know what it looks like when I watch but I don't know what it feels like when it's happening. You know, I can I can describe what I see with my daughter, but I don't I imagine it's pretty frightening. And yeah, you know, in just I don't know if you imagine your blood sugar's real high, you you've been like that for hours, you're cloudy, you're moody. And you've got this, you've got this device in your hand and you're like, you know what, I just gonna give myself a lot of this right now and see what's going to be you know, feels like a feels like a jumping off a cliff and you're like, I hear water down there. I can't see it. It's probably down there. You know, you're I go. Anyway, it's, it's it's really lovely to have somebody perspective who, who genuinely has been through it. So thank you very

Unknown Speaker 9:16
much. Absolutely.

Scott Benner 9:19
Friends, it's time to get yourself a free, no obligation demo of the Omni pod sent over to the house. Okay, let's talk about the AMI pod tubeless insulin pump, besides being absolutely spectacular, is the insulin pump that my daughter who was about to turn 16 has been wearing every day since she was four years old. That's a long time. Every day on the pod comes through exactly the way we expect it to and in a myriad of ways by being unobtrusive by being tubeless by helping us with extended boluses Temp Basal rates and just being what's the word I want really just it's there, it's solid, you don't mean like it does, it does what I think it's going to do when it's going to do it, I get what I expect. And what I expect, is a quality insulin pump. That gives me the delivery and the wearability for my daughter that we need. And that means that she can stay attached to her insulin, when she's playing sports without being obtrusive, while she's taking a shower, sleeping, running around in the backyard, jumping on the trampoline, riding a bike, swimming, all of the things that your body still needs insulin for, you know, when you hear people saying, Oh, I disconnect for that? Well, they don't have insulin during that time. And that's very likely gonna cause a high blood sugar. Now, I understand that two pumps need to be disconnected sometimes. But the Omni pod never needs to be disconnected. It's tubeless. Wonderful. And you don't have to take my word for it. Because on the pod will be thrilled, happy, elated, delighted to send you a free no obligation demo that you can try it on yourself. Find out if what I just said is true. But you notice, but still try my on the pod.com Ford slash juice box. Check it out, get the demo, decide what you want to do. If you want to keep going with Omni pod, it'll be easy. And if you don't, no harm, no foul. You were just trying. That's why they call it no obligation. Now I have an obligation to tell you about the dexcom g six continuous glucose monitor. This application is both business oriented because their advertisers and moral because I think everyone should know about the dexcom g six continuous glucose monitor. Here's why. I'm gonna use an example from this morning. Arden wakes up her blood sugar is 106 I see it on her Dexcom nice and steady. I hear her moving around upstairs. No big deal. She's getting her face wash getting dressed, getting ready to actually go out right now. All of a sudden or blood sugar diagonal up starts moving up. 106 turns into 115 turns into 118 all of a sudden 125 Well, we bolus right we're trying to stop that rise before it happens. Arden's trying to go out just trying to do things she needs to eat. She doesn't need to walk into this day. 5060 7080 points higher than she needs to. But imagine had she woken up and tested her blood sugar with a meter boom, she would have saw 106 and thought, Hey, I'm doing great. And then she never would have seen anything that happened next. And then a half an hour 40 minutes later when she's sitting down to eat and tests again, you know in a world without a CGM. Who knows what she is to 25 now suddenly, the first meal is in jeopardy. It puts the rest of the day in question. You're looking at roller coaster going up and down and up and down are skipping a meal. Instead, beep beep Arden's blood sugar hits 120 she gets a little insulin right back to where we need to be ready for that meal ready for the day. That uniquely happened because Arden has a dexcom g six continuous glucose monitor. Now that's just one example. Imagine all of the other ways that technology can be used for you. Imagine that the way I found out about it wasn't because I was bugging Arden while she was getting dressed. It's because it popped up on my iPhone. Because the dexcom g six has Sharon follow. And that works on Android and iPhone. So Arden CGM told her app or app, put it up in the cloud came back down on my phone, just like that we averted a high blood sugar burden the problem at a meal. save the day Dexcom g six is going to save more than one day for you. That's for certain. Find out how you can get

at dexcom@dexcom.com forward slash juice box. There are links to Dexcom Omni pod and the other sponsors at Juicebox podcast.com. If you can't remember them, they're also right they're in the show notes of your podcast player. You can click on them right there, like click Like with your finger. very much appreciate when you support the sponsors because it supports the podcast, whether it's on the pod Dexcom the Contour Next One blood glucose meter or touched by type one. When you check out the links. You're telling those sponsors I listened to the Juicebox Podcast I heard about you there. They keep sponsoring you keep getting the podcast for free. Seems like a good deal. Alright, a little bit of music, and we're out of here. Do I have any announcements here maybe one Hold tight. You can find the rest of the defining diabetes series as well as ask Scott and Jenny and the diabetes pro tip episodes at diabetes pro tip comm you can find them too at Juicebox podcast.com But, you know, diabetes pro tips pretty easy to understand no es after the P, so just the P no si p.com diabetes pro tip.com. Also, if you have a great doctor or need one, for type one diabetes, check out juice box docs.com do cs juicebox, Doc's calm and ever growing list of Type One Diabetes healthcare professionals that listeners of the podcast have recommended. Let me give you a couple of examples. For instance, right there in Australia, Rachel Baker, Rn NCD. He does some amazing work. How about up in Canada? Dr. Jeremy Gilbert, over in Ontario, that's Toronto. You understand Toronto, Ontario, right? Like Canada does their places weird? I mean, compared to how we do it. How about Melissa and tonic? in Fairfax, Virginia. alfonzo, Armstead, Nashville, Tennessee. And many, many, many more. And people put in effort when they send in their doctors to give real examples of why, for instance, someone wrote in that Elizabeth Harris in Chapel Hill, North Carolina, she said about Elizabeth, I've worked with Dr. Harris for close to a decade and she's taking care of me through many different stages of my diabetes. From the disengaged teenager to the engaged with struggling young adult to well controlled debate goes online, check it out, juice box, Doc's calm. It's not a pay service. None of the doctors are paying me to be there. It's just me trying to take your good experiences, and putting them in one place so somebody else can get the advantage of what you've learned about your doctor. Thank you so much for listening to the podcast for sharing it for rating it on iTunes, which they don't call iTunes anymore Apple podcasts. That and I just got a great review the other day that really made me happy, and I appreciate that you guys are enjoying the show. Thanks again, keep sharing June was the most downloaded month in the history of the podcast. Not only that, but I'm talking about june of 2020. June of 2020 was for downloads 100 times greater than June of 2019. But listen to this 525 times greater than June of 2018. So we're coming up on another big milestone for the podcast. That's a try to see what I can do to celebrate 2 million downloads. I don't have any ideas yet, but I'll figure something out. I appreciate you helping me get to those downloads by listening by bingeing by sharing. They're all amazing things that you guys do it support the show. Thank you so much. I'll see you soon.

support the sponsors

more juicebox

#1748 Tandem Kids: Oliver

#1747 Tandem Kids: Adelaine

#1745 Icky Sticky

#1744 Life Coach: Empty Nest

#1743 Penny Drop - Part 2

#1742 Penny Drop - Part 1

#1741 Body Grief - Part 1

#1740 Bolus 4 - Potato Chips

#1739 Smooth Operator - Part 2

#1738 Smooth Operator - Part 1

#1737 Gesundheit

#1736 With Haven

#1735 To The Moon And Back - Part 2

#1734 Defining Diabetes: Priming

#1733 To The Moon And Back - Part 1

#1732 Squooshie Pushie

#1731 Medtronic for the Win

#1730 Fat Beagle

#1729 Cinderella Story - Part 2

#1728 ADA Standards of Care for 2026

Donate

Scott Benner 7/1/20 Scott Benner 7/1/20

#351 Three's Company

Come and knock on my door!

Jeff, Scott and Kristin (I know right? Three people!) have a deep conversation about type 1 diabetes, life and t-shirt slogans.

Check out the Diabetes Pro Tip episodes and Juicebox Docs

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
Hello friends this episode of The Juicebox Podcast is sponsored by the Contour Next One blood glucose meter and touched by type one, go to touched by type one.org. Or Contour Next one.com. To find out more.

Today, I bring to you a tour de force in podcasting. two guests able to speak at the same time. Hmm, what's that? You say? That's different Scott? Yes, it is. Kristen and Jeff are on the shows today. Their parents of a child with typed on their parents, Christina and Jeff are me a drink. Let me just start over here. Kristen and Jeff are on the show today. They are parents of young Tess who has type one diabetes, and they're up for some deep conversation. So this one just, I love it. I hope you do too. Please remember, while you're listening that nothing you hear on the Juicebox Podcast should be considered advice, medical, or otherwise, please always consult a physician before making any changes to your health care plan for becoming bold with insulin, alright, settling. A lot of goodness in this one. We're gonna say that music. I love it.

Unknown Speaker 1:42
Dude,

Kristin 1:45
this is fine. You actually talked back when we're listening to you in the car. I'm like, but but now I'm like, Oh, he's right here.

Scott Benner 1:53
Let me just say I think it's really positive that I don't speak back to you while you're listening to the podcast. Okay, yeah, I mean, your doctors would be thrilled to know that that's not happening. So we are already recording and in a second, I'll just ask you to introduce yourself. You guys were interesting in as much as that you had a fairly like cogent idea for what you wanted to talk about on the podcast yet the podcast never really have cogent like plan.

Jeff 2:25
Yeah. Plus, that was like six months ago.

Scott Benner 2:27
Hoping you forgot. Yeah.

Kristin 2:31
We did. We made notes. We we got into conversation last night about it. That's about as much planning as you're gonna get.

Scott Benner 2:37
I think that's perfect. I think that the reason the reason there are a lot of podcasts, nobody listens to us, because they, they try to make everything perfect. till they're reading, you know. So you know what, I'll let you introduce yourself in a second. But I don't want to lose the thread for a moment. Okay, let me let you know what No, no, forget it. Go ahead. Introduce yourselves first.

Kristin 2:57
Well, actually can ask a couple of housekeeping questions super quick. Yeah, sure. Um, I have a one o'clock appointment. And so I have to kind of leave it like 1230 1245. What's your feel on that? What's your read? Like,

Scott Benner 3:12
Oh, God, if we're not done by 12? Okay. Let me be certain to tell you that if we're not done by 12, or 1215, one of us is woefully far off.

Kristin 3:24
Okay, that which is a great segue into my second question. We're not allowed to cuss.

Scott Benner 3:29
Right, I can't curse. I mean, if you really feel it, let it go. I'll beep it out. I don't have a problem. I don't have a problem, to be perfectly honest with you. If you curse on iTunes, it eliminates a bunch of countries. And so I don't curse so that I can have a more worldwide show. I would love to curse. Most of my life is cursing. And if I if I did a episode The way I normally speak, I honestly believe no one would listen to it. Or I'd have a completely different group of people as an audience.

Kristin 4:00
Like I'd lose their mouth too. So I got to kind of watch it.

Unknown Speaker 4:03
No idea. Yeah,

Jeff 4:05
I mean, these poor souls in Eritrea that wonder why they can't get basal rates? Correct.

Scott Benner 4:09
You know, India actually is one of the places and there's a lot a lot of people be surprised where the podcast is listened to. It's kind of crazy.

Jeff 4:18
Anyway, great. I think that's awesome.

Kristin 4:20
It's actually a really big study that just came out of India like 41. I have like only 41. But T one D kids and families were were looked at in India, I thought was really interesting. Anyway. All right. Here we go. Introduce yourself. I am Kristin Harkey, and I am Jeff Johansen. Okay. Okay, hold on. No, wait. You see, you're already on there. Kristen. You didn't want his last name or he didn't want you to have it or you were just Well, I love the Harkey name. We're not married. What's the deal? No, we're definitely married. We've been married 12 years. And I just have always been Kristin Harkey, and so I just figured I would navigate through this life. Being Christian Harkey,

Scott Benner 5:01
I have to admit, I agree with you. My wife wanted to keep her maiden name and I we were so young, I kind of pounded about it. I think that's the only reason she has my last name. I think if she would have said the same thing to me. Five years later, I would have just been like, Yeah, whatever. I don't care.

Unknown Speaker 5:17
Yeah, we all girl, we all we all change.

Scott Benner 5:20
Okay, so, Kristin and Jeff. Married for 12 years. Any kids?

Kristin 5:26
Yeah, so we have the one we're wanting done. Um, her name is Tess and she is a third grader. And she was diagnosed when she was four. So just in preschool, so we're coming up on our fifth year as T one D parent

Scott Benner 5:39
tests like Robo tossin or

Unknown Speaker 5:42
no TEST TEST like tests like Tesla.

Scott Benner 5:46
Know, your your, um, your accent got me there for a second.

Kristin 5:49
Oh, gosh, it really comes out, doesn't it? No.

Scott Benner 5:53
I thought Chrissy just like put put that kid's name into a letter generator. And they're like, that's a color toss. I just figured Jeff was drunk when you asked. He's like, yeah, that's fine. Toss it. So test is in fourth grade. Now.

Kristin 6:07
She's in third for and she was diagnosed at age four. That's a right after a birthday.

Scott Benner 6:13
That's where the four came from? Yeah, January.

Kristin 6:18
What year? 2010 2014 2014 2014? Oh, right.

Scott Benner 6:24

She was born.

Jeff 6:26
December 2010. born January 2014.

Scott Benner 6:31
And you guys are drinking robot tossin not naming your kid.

Unknown Speaker 6:35
No joke, at least do well with that instead of Rob.

Scott Benner 6:43
Okay, so all right. So I first of all, are mad respect on the one kid thing? I think it's a it's a brave and

Kristin 6:52
we were a little late to the game. I was 35. And she was born. So that was part of the reason to?

Scott Benner 6:57
I see. I see. I understand.

Kristin 7:00
We took our sweet time. Well, you know, and we were both working. We were really in kind of full career mode for a long time. And, and I you know, I was working in an executive chat kind of nonprofit environment. And Jeff has been a veterinarian and in emergency care for over 19 years, 19 years, just

Scott Benner 7:21
a veterinarian and the emergency care is around centered around animals. You're not like a dual citizen doctor small animals. Okay? No kitty cats and dogs. How many times do you see a small animal that's hurt in an emergency situation that you look at smile at the owner and go, just give us a second and then you close the door and think I can't help this animal? Is it like they're like, do they?

Jeff 7:44
Well, you don't start from that point of view. I mean, they you know, you try to get a good assessment, a good judgment about about what's doable, help them with the options and just be there. So I don't do emergency anymore. I've kind of transitioned out of that. But I did did work as an emergency vet for 17 years and

Kristin 8:02
for the first decade of our marriage, he was working overnights and weekends. And so for those first couple of years of tests his diagnosis that was really rough, you know where it was like he wasn't he wasn't there. But then he was there another amendments? Oh, yeah.

Scott Benner 8:16
Did you feel like you couldn't sleep when you were by yourself? Whether they're,

Kristin 8:20
uh, you know, sometimes not. Sleep is not a problem of mine typically. And this predicts calm to Yeah, this was pre pre those days. This seemed like the wild west to us now

Jeff 8:31
roll the dice and hope she wakes up.

Unknown Speaker 8:33
Yeah.

Scott Benner 8:36
I've had that thought. Like, I've walked back into the bedroom before Dexcom. My wife's like, how's it looking? I'm like, I think she's gonna make it till tomorrow.

Jeff 8:43
Right. I beyond that. I can't make any promises. Yeah.

Scott Benner 8:46
Laughter Yeah, it really is really a strange to think. Like, once you've seen a quick fall on a CGM graph. And you think back to when you didn't have one. You think that happened before I knew how fast it was falling? Like what stopped it before? You know? Yeah, I know, this is off topic for a second, but I'm just wildly interested by this for some reason. And, Jeff, if I don't ask you, I think it'll stick in my head the whole time. We're talking How frequently do people not do things with their pets because of cost? that the that the animal needs? Does that happen a lot or not particularly?

Jeff 9:23
Um, it does happen. I think, you know, there's a lot of pet owners out there and not everybody's necessarily in financial position for themselves, or for their own families much less unique. Add an animal to the mix. And so you know, part of what we do is really to try to, to not force people to think there's only one way to deal with this, you obviously want to provide them with a gold standard plan, but if that's not gonna work, then you try to tailor something else that's going to work and I think, you know, that kind of gets that's part of the challenge of what we do too is working within the owners means because we See the animals don't show up with their own credit cards in the in the pocket.

Scott Benner 10:04
Yeah, by the way, if the world gets to that, I think we're in trouble. But

Kristin 10:08
probably, yeah. Jeff Jeff's world is the Bretton Spanner that is fascinating to me, where for years, he could walk into an examination room and be meeting with a farmer who has a dog that has a hurt foot, and well, that dog is now useless to the farmer, right? And then he can leave that room, go into the next examination room, and there's maybe somebody there with a 16 year old cat with cancer, and they're willing to spend $10,000 on that cat, you know, so it's, it's just such a pendulum just such a big swing. It's not at all like human medicine in that way. Yeah.

Scott Benner 10:41
Yeah. It's just it's kind of fascinating to me, it's not nearly what we're going to talk about, but I just it's it does strike me that that's such an odd, and you just encompass that perfectly what I was thinking like, it's

Jeff 10:50
there are also some regional differences, too, you know, you go to the big cities, and some of the cost of the care is just, you know, it's spiking. Yeah. You know, we live in a fairly small South southeastern town and I'm city, but you know, fairly reasonably priced here. But you get into the major urban centers, and it can get very costly, very quick. I have considered sometimes I've seen my veterinarian, leave the room for a second. And I think, Where's she going? Oh, you know what? She's calling

Scott Benner 11:18
to read a book. She's cutting that out. She's calling Chevrolet to let them know she can make all three of her back payments. Like like my dog just came in, you know? Don't come for the car. I worked it out.

Unknown Speaker 11:29
Scott's dog has an ear infection.

Kristin 11:32
Yeah, I don't I don't I have to say when I'm at a bar with Jeff and someone walks up and says, Oh, you took care of my animal. I'm like, Oh, God.

Scott Benner 11:41
Which way is this gonna go? And now I'm divorced, because we're broke. Thanks so much. Anyway, all right. So So test is third grade now. She's had diabetes for is it five full years?

Jeff 11:54
I fall here in January. It'll be fine. Yeah.

Scott Benner 11:57
Okay. Yeah. Okay. So listen, I this is a unique scenario. Because the Jeff Christian have technical technology on their end, like Pete, this is this episode is going to screw me up guys. Because everyone's always like, I want to come on with somebody else. And I'm like, No, I don't have the technology for that. I'm sorry. But yeah, but you have technology on your side that made it doable. But most people don't. So, anyway, please don't send me a bunch of emails and say, now that you can have, but you know, if you can set it up on your side, let me know. But, but what did you guys when you first reached out? What were you thinking? Like, this is what I want to talk about on the podcast?

Jeff 12:38
Well, I guess I don't hear enough, from the both perspectives, I feel like, you know, what I've heard on the podcast is one person's take. And I guess in real time with someone here to fact check me and, you know, inspire me to truth and goodness, I feel like, there's something about the impact of this, this illness on on couples, specifically that that was kind of where my angle was, and, you know, not necessarily looking at it as a therapy session, but just kind of wanting to get a message out that this is hard on couples. And you know, we always try to paint a unified front now out in public, and, you know, things are going great, because you don't want to go into all the, you know, things that sucked about the morning or right, um, you know, the hard times you're going through, you just kind of put a happy face and just keep going and, you know, take care of the kid. And so, I feel like we're good at that. But it's just something that we're doing that I guess I wasn't, I wasn't hearing that perspective. And I am a pretty avid listener of your podcast, I get I get to drive myself to work and listen to podcast. Kristen has the kid in the car all the time. So

Kristin 13:51
I'm primary caregiver for Tess's care. And we can kind of get into that because I think how things are delegated between couples is really interesting. And I also think, you know, the backdrop that you just sort of heard us summarize that we were both very career minded for quite some time and Tess's early, early years. And then when she was diagnosed, in a lot of people's view, we kind of downgraded, you know, like I switched jobs, I fell into a very fortunate situation where I actually work at Tess's School, which is elegant in so many ways. But, but Jeff, meanwhile, has has sort of transitioned out of the emergency care work and into a day practice. And that's because we need to change this to our hours. Yeah, but then that also changed, you know, what we're bringing home and, and some of the money is like, oh, already a stressor in any relationship. So to have it feel somewhat compounded by something that was out of our control, you know, I just think I think that's a unique area in this and then don't even get me Started on insurance companies and how we have to spend time on the phone with them. And Jeff really takes on the insurance and the medical distributor, this bution and the pharmaceutical side, you know, where as I'm doing more pod changes, and more morning care, and then I'm at school. And so I'm the one popping in and giving her insulin to cover lunch, etc. So it's just a strange world tapestry that we've woven, you know, no,

Scott Benner 15:32
no, I I've said before, that soon after Arden was diagnosed, we went in for care and was diagnosed when we were away on vacation. So we had to come back home and then go to, you know, an appointment with the endo. That was near our house. And after the it's funny, almost that episode after the appointment. Isn't that crazy? Like, episode one. So after the appointment, the doctor asked for our kids to leave the room, she kept my wife and I behind I've said it before, but it fits really well in this episode, and she says, look, you guys have to go to couples counseling. And I thought in my head, I was like, how did she can she hear in our house? Like, how does she know that? You know? And and she's like, because, you know, the incidence of divorces like one in two in America, it immediately goes to one in three, if you have a chronically ill child, or two and three, if you have a chronically ill child, it's like, my odds just got worse to stay married. I was already like, you know, be married. It's not easy. You know? They mean like, I don't.

Kristin 16:33
Yeah, excuse me being appearance Not exactly, yeah,

Scott Benner 16:36
yeah. Yeah. Anyone who thinks married, being married as easy hasn't been married long enough to know what they're talking about. or your spouse is woefully lying to you on some other end, like you're saying things and they're just like, annoyed by you and never let you know.

Kristin 16:49
It says it. I think it just takes an incredible amount of self reflection and forgiveness between partners. I mean, on a daily, sometimes hourly basis, you know, and I mean, I have, yeah, so I mean, like, I'm not here to give relationship advice, right. Like, that's not what this is about. And, and Scott, please don't start into that world. Okay. But I would say that, you know, the trick is just not blame each other, you know, that took time for us to learn, I feel like and you know, and I'm certainly still learning this. And then the other tricks I would offer are, you know, get angry at the disease, but not at each other. It's so tempting to just want to like lash out when you're really having a thin day a day where you're just struggling so much, you know? Sure. I mean, maybe one last trick would be to try to give each other breaks. But that is so hard. That is so hard. We have struggled a lot with just finding baby sitters and people who can just, you know, drop in and take care of her while we run off. And you know, just go get dinner. Yeah, anything Oh, for certain.

Scott Benner 17:59
So it's interesting. You said, we shouldn't give relationship advice. And you gave some really good advice about relationships. But I what I was going to tell you is that nothing on this podcast is advice. So it doesn't matter. We're all good. We're covered by the disclaimer at the beginning, you can say whatever you want. I'll tell you the one thing that always kind of hits me when I'm talking about a relationship or being married. And this might be very specific to me, I have no idea. But what I find is my desire to do a good job for my wife hits me back as guilt. And so if you know if she has a bad day, I feel badly that she had a bad day. And I feel like I wish I could have done something to make it better. Or like the you know, where sometimes like, then I'll speak about, you know, I don't know, like, like you mentioned talking to like insurance companies stuff like on the phone. There are days she'll come home. Sure big How is your day? And I'll think I was on the phone for like 90 minutes, trying to work something out with like insulin, you know?

Jeff 18:56
Uh huh. And that's a good day. 90 minutes. Yeah, right. Right. And and

Scott Benner 18:59
you're exhausted from it. And the minute she feels like I had a bad day, I see her go Well, today I did this. And it's almost like she wants to make sure that I know. Don't worry, while you were working hard. I was working hard to Yeah, right. Yeah, it's this very, like, I don't know if anyone's ever had that thought before. But I've told people in the past, I'd been at stay at home dad for coming up on 20 years. I don't think the television has been on while the sun has been up in my house. Maybe five times not entire time. And it's great. Okay, part of that is because of my incredible anxiety that I want to be working as hard as my wife is working. Oh, yeah. And then when I feel like I'm not, it makes me feel badly. But then whatever I say when I'm feeling guilty is never good for our relationship. I don't know if that makes sense or not. Because I always start trying to justify my life. Like Don't worry, I was working I did this I get my way and my wife's not like walking up to me go and tell me what you Did today, like make sure like like a timecard. You know the mean? Like I don't, it's just this feeling I have that I want to be matching her effort

Kristin 20:08
takes so long to even get to that level of communication where you're truly not hanging, hanging things on each other, you know, like, in the mornings just isn't as an example, we're in a rush to get off to school tests. And I, and Jeff will ask, Well, I'm going to let the dogs out. And we have to let the dogs out. And then he'll say, should I leave them out? Or do I go and get them? It's just a really small minute little task in the morning, right? A little tour? And and we immediately go into No, I can't do it. Yes, I can do it. No. Because I might have had a pod change that morning. And that might have taken an extra 25 or 30 minutes. And, you know, yeah,

Jeff 20:50
friendly tip. If there's an omni pod change, do that morning, I should just go get the dog.

Kristin 20:54
Yeah, or just, you know, you pick up the slack on those days, when you have more of a challenge. I guess it's kind of an obvious statement. But do you think that in a podcast having explicitly said is is important?

Scott Benner 21:07
Well, I also think that what's obvious when you're intellectualizing about things is not what's obvious when you're in the moment, I will bring to light a video that my wife showed me online the other day, that's, you know, somebody pretended to be like Mike Myers or something like that. And this woman comes into our house with her three kids. And he jumps out at them, and you know, scares the the holy hell out of everybody. But in the, but then didn't stop like the person the mask holding the knife trying to scare these people persisted, it wasn't like boo, and then showed themselves went after them. The woman abandoned her three children and ran away. And so what?

Jeff 21:46
Okay, so, mask a little too far,

Scott Benner 21:48
you will say she's like, Oh, I can make more kids. I gotta go, you know, so, um, but but you know, what, you, if we sat around and talked about it, oh, if an intruder came into our house, what I would do is I'd collect up my children and I would about Yeah, what she did was she would I don't want to die, and she took off. And so I think it is, I think that it is worth saying those things out loud. Because in the moment, it's hard to remember that stuff.

Kristin 22:12
I think, I mean, you just hit the nail on the head, but just even talking about that video, because one of the things I have my studious little notes right here is talking about confrontation versus distancing. You know, it is the flight or fight or flight response that when you're under stress, which I don't know a lot of T Wendy parents who aren't under just sort of a persistent low lying kind of, I have this I'm looking at, I'm plugged into this, and I'm looking at this constantly. You know, that's where I feel like that confrontation or that distancing is how you're going to cope, how you're going to cope. And lucky for Jeff and I, I feel like we do Lean In we decide to confront rather than distance ourselves. And, and maybe there's a different way to say that maybe with not such the negative feeling of what a confrontation can be, maybe it's a form of problem solving. But when you are in the moment, you've got like three things happening, and then her blood sugar decides to drop, you know, it does begin to have a kind of, I don't know, we just have better outcomes, when we can just get really clear, it might be a thought about this, that Jeff's emergency background has really helped us quite a bit and navigating her care, because he can just be so clear and so concise, because that's how an emergency room setting is, you know, and it's so that's helped us but then yet it kind of could take away some of the glow, you know, some of the warm feelings in the home when we're just, you know, treating everything so directly. Well, so yeah, we've learned we've learned a few things.

Scott Benner 23:50
I'll tell you one thing Kelly taught me was. And it kind of ties into what you just said, there's so much happening all the time. And you're sort of have this like low level awareness of the blood sugar, not I'm better at it now, like quite honestly, I am. And a lot of this podcast comes from my desire to not want to think about it constantly seeing seeing how psychologically improper, that is to understand what's happening constantly with someone's blood sugar. So if I can trust that what I know is going to happen is going to happen, then I can stop wondering about if it's going to happen. But when it used to be in my mind constantly, sort of just in the back of my head, but other things were happening. I used to need a like a clean break from reality to go think about diabetes, and I used to just say when something went wrong, but I would say it out loud, like you know, you know, you'd be moving along trying to do dinner, beep, beep and then I'd stop myself and turn and go do the diabetes thing. What I didn't realize was my wife found that really negative and she's and she said to me, she's like, I can't when you do that, it makes me upset and I I'm like, Oh, I'm just trying to break my reality and then go do this thing and then go back to again. She's like, yeah, from from our side. It doesn't, it's not doing what you think it's doing. It might be doing it for you, but it's not doing that for us. And so it took me months to stop myself from this, I had built up a tiny little habit around it. And, and I realized that to them, it looked dramatic. And like, I was upset or worried, or it was bothering me. And it never felt like that to me. I was just stopping myself. And I know, that's weird. But that was my personal thing. And then Luckily, she said something to me, or I'd probably still be doing it.

Jeff 25:36
Is that an effort to just keep everything you know that you never get away from it? So you just always keep it there? Or are you able to get away from it a little bit? And then you're saying that that's what that's what you're objecting to is? No, oh, crap, I got to go do this thing now. And

Scott Benner 25:52
it wasn't an objection. For me, it was like a separation. So like, I feel I don't, I am one of those people that if I'm in a room, and I'm cooking dinner, and you and Kristen are off in the corner, having a conversation that's kind of meant for everybody, and the televisions on, I know what YouTube, we're saying to each other. I know what I'm doing. I know what I'm thinking, and I know what's happening on the television. And that's just been how my brains worked my whole life.

Jeff 26:15
I'm the aware.

Scott Benner 26:16
So we have Well, so what I need is I need like a bubble of silence around me so that I can stop and think about the diabetes because back then it wasn't the same as it is now for me. Now I'm telling you, I just look at the the graph and I go, Okay, here's what I need to do. And it comes to me very quickly, but back then I needed silence to kind of just wrap my mind around everything that was happening with the diabetes, so that I could try to make a good decision. So that that curse was what broke the noise for me and, and created a space.

Jeff 26:48
And we share that in a way to you know, sometimes we'll do a handoff and say, You know what, I'm gonna take a break tonight. You You, you watch the numbers tonight, but most often, we're both aware all the time. And you know, whether I've been there all day, or they're just getting home, it's usually Okay, it's time for me to step in, take a quick look at the graph, you know, listen to what she wants to eat, and then kind of pick it up from there. So yeah, you know, we don't we have different approaches a little bit. So it's not even just the care is kind of like it. It changes based on whether it's something you're processing, I'm processing, whether we go through it, you know, often when we're together, we'll make a decision together. And I'm sure test is tired of hearing us like, argue about whether we're gonna do the 35% extend or a 44% extend?

Scott Benner 27:35
Well, yeah, prior to the technology, when we hand it off, it was it was arduous, because you'd be like, Okay, listen, at three o'clock, she ate this at two o'clock, we injected the Lantus or levemir, when in at 8am, like you gave this like it was like a nurse leaving or shift. Yeah, right. And now because of the technology now, because the pump knows, this is the last time I bought this how much it was, and you can see on the graph what's going on, there's sometimes something to say like, hey, she's been, you know, there's I feel like there's been some insulin resistance today. Or you know what she hasn't needed as much today as she does normally. Or, you know, make sure your Pre-Bolus because my wife is not the greatest Pre-Bolus sir, right, like, so sometimes I'll say that. But I even had to learn how to say, don't forget to Pre-Bolus without saying, hey, Kelly, you suck at Pre-Bolus saying, right. And even though I never used those words, my tone was my tone was, you know, you're gonna forget the free Pre-Bolus and mess this whole thing up. So please remember that, but now I just I found a better way to do it. And it's funny because the way my wife got me to be better at it was she would say, pretend on that podcast and talk to me like that. And I was like, oh, because I am different here than I am at home. I'm I'm, I get reviews are people like I love how direct you are on the podcast. And I laugh because you have no idea how. Like, this is this is me at like, with kid gloves. Oh my god, this is like me at like 20%. You know? And I am and I'm jokey. It's so I can joke right into something serious. Sometimes I stopped and I'm like, okay, I meant the first part. The second part was a joke. The third part is the Pre-Bolus I'm very sorry, I blended all that together. You know, and so I am this podcast, you know, you hear me say all the time, like how great it's been for me, because I get to go over the diabetes stuff over and over again. But it's also good for me for communication. You know, for for me staying kind of centered and calm. When people come on who are from further south like you guys are in North Carolina. That's not a real Southern place anymore. I'm sorry, because of all the people who have been moving in you have a nice blend. I didn't mean it wasn't a shut in place. Please don't stop listening if you're in North Carolina, but but it's got it's got so many people from so many different places that to you, I don't speak that fast. But when we get a little more south, I actually have to try to slow myself down long. And

Unknown Speaker 30:01
I'll take that as a compliment.

Scott Benner 30:03
And and not that people who speak slower, you know, shouldn't be complimented, I actually find the way they speak really lovely. I just can't. I can't make myself do it. And and when they start speaking slower, there's a small mind, like a little voice in the back of my head that is yelling in my ear. Why won't they go faster? And I'm trying to be and I'm yelling back at the little voice in my head. No, no, stop it. This is good, slow down. Anyway, there's a whole podcast going on in my head while we're doing this. But my wife helps me constantly Listen, I am not. I'm 48 years old, had I not met my wife? I don't know what kind of a mess I'd be right now. Like, honestly, I'd still be 22 in my mind, I think, you know, I say all the time, my wife is killing me with her demands. But but but of the things that we should be doing and should be accomplishing and what the kids need and what life should be all that stuff. Like, there's a little boy inside of me who's like, Why won't she shut up and just let us have fun, right. But the the mature father, an adult in me that that really does want to grow knows that without her, I don't grow

Kristin 31:13
your situation interesting, because when I give a cursory look at research and things, different articles, medical journals, they say that most of the caregiving is done by the mother, right? Yeah, that that's primarily what's happening in the household. And then I've also read that somewhere between a quarter to half of all t Wendy, mothers are experiencing some form of anxiety or depression, or something called a morbidity syndrome, or there's PTSD. And you know, it's so true, you're just already under some duress and pressure for all the tasks that you perform for T one D, but then in addition to that, is just being the regular parent and just being the regular wife. And you know, and so I think there are just classic responses to how we, how we deal with stress and how we deal with vulnerability. And those are going to assert they're going to come up in your relationship somehow. And I, you know, I don't have all the answers. But I definitely think that, that just being able to say that depression can be present and the T one D home is something we have to we have to grab on to just grabbed by both horns and say, you know, don't be afraid to admit that you're dealing with that kind of stuff. Because it can, it can really help your relationship to go and get help and get support. So

Scott Benner 32:34
yeah, well, you outline something that's amazing. So the rest of my story about that first doctor's appointment when she says, you know, it's two and three who get divorced, after she gave us this statistics. She looks at my wife square in the face and says, The men don't handle it well, when their children don't turn out the way they expect. And I actually was like, Yo, I'm standing right here, like, like, Could she have not written that on a piece of paper and slipped into or something like that?

Jeff 33:00
They also don't like being talked about. Well,

Scott Benner 33:02
yeah. Yeah. And I was like, wow. And then but my wife laughed, and she goes, Oh, you have our situation all wrong. She goes all leave way before he will. And, and, and it broke a laugh. And my wife said, No, no, seriously, she's like, Scott's a caregiver. Like, there's a reason he's not she left, she goes, he's not staying home, because he couldn't get a job. We made this decision consciously. And, and, and so. And that goes to my background. And, you know, I've mentioned here before on the podcast that, you know, I think that some of the reason why I can talk about this diabetes, which is at a high level, but in a very kind of real ways, because I'm an adopted person, I am a fairly bright person who was adopted by some very nice middle class people. And so I'm this very strange blend of an educated, but my brain has the capacity. But at the same time, I know how to talk to people, I know how people like to be spoken to, and how regular people interact with each other. And so that I think helps the podcast but then I think the next thing that helps is the stay at home dad like aspect of it, because I'll go out on a limb here because I'm, you know, I don't want to jinx myself, but I have two very normal, mellow, reasonable, nice kids. And there have been times while I've been raising them where I've seen, wow, in this scenario, that thing you just talked about a little while ago, Kristen, that whatever that wire is, that goes straight from your uterus and your ovaries to your brain that makes women like look at their kids and fear for their entire life. Every time they look at them, you know, right? I don't have that. So when something like that happens, I'm just like, you know, get up It's okay. Or, you know, the other, you know, six, seven months ago when we started and we went to the loop and, and I put it on art and she goes, is this gonna kill me and I went, probably not. And then we both laughed and walked away from each And then like, and so that's something that's a comfort she has from my parenting style. And I genuinely meant it when I said, probably not, I thought, No, I probably won't. And I never thought about it again. And so my wife would, would stand there and stare at it forever thinking, This is my mortal job on this planet to make sure that that kid is not just fine, but 100% happy and gets as far as they can in life and whatever that anxiety is that you poor women have after you make a baby, because I didn't, I didn't notice it before I got her pregnant, to be perfectly honest with you. So whatever that is, I don't have it. And so it allows me to be a little looser and a little calmer in those scenarios, I think. And I didn't mean calm in a productive way. I just mean that there's not, I'm not being poked in the brain with something that's yelling, oh, my God, oh, my God, go save that kid.

Kristin 35:52
Yeah, my parenting style would actually mirror that you have yours that better? I mean, I would say that actually, after you've seen a low or after you've been through some of the initial trauma of diagnosis, you just toughen up, you know? And so now I'm, I'm the parent, like, it's certainly around my friends and another circles where they're just like, you let her do what? Like, I mean, so you, I think, I think t Wendy does have the ability to make you a tougher individual. And, and I think other people actually look at me sometimes, and I don't know what they think. But I know that when we're out with friends, and Jeff and I are speaking in code, okay, 30%, bazel, increase and point four and, you know, yelling at each other from other rooms or something, just to take care of the, the to end stuff. I just wonder what they must look at it, they, sometimes they, they're just aghast, like, we have to deal with. But then, you know, other times, those friends of mine probably think that I can just handle anything. And I'm just here to say I'm, I can't, I can't handle everything, you know, and, and so my truest friends understand that and know that and, and they're willing, they're willing to learn enough to do an overnight with tests, or, you know, to have that level of communication in place. I always

Scott Benner 37:14
think of it as perspective. Like, like, you know, it's you don't have real perspective until you've until somebody has said to you, hey, inject this into your kid, if you give them too much, they might die. But if you don't give it to them, they're gonna die. And you go, Oh, okay. And then your perspective is adjusted. And yeah, keeps happening every day, like you said, You know, I say stuff on this podcast all the time that I don't know how it strikes people the first time they hear it, the one thing that I'm sad about about the podcast is that I can't force you to listen to it in order. Because Because it grows as I grow, the ideas grow as I grow. And if you're really to hear those ideas in order, you know, it's helpful because you don't want to jump in in Episode 150. When the first time you hear me say like, Oh, you know, sometimes you got to look at a 57 blood sugar and have the balls to just stare at it for a couple of minutes. Right, right. But you do, except out of context. That may not be great advice. But in context, and in the timeline, you would understand it. But I think that that perspective, it I've seen it build in me over the years. And it really is a shame. It really is a shame that we die when we get older, because we really are just starting to get good at you know what I mean? It's very true. But But you said something a minute ago that it's funny. I used to feel that I don't feel anymore that made me wonder if one day you want to you said something about what what Jeff and I have to go through. And I don't think of diabetes is something I go through anymore, but I used to Hmm,

Jeff 38:46
I wonder how much of that is age related? Because I feel like you know, she's getting older this we're getting closer and closer to narrowing the communication, where she's going to take over a lot of that. But as we are right now, she's not really doing anything on that level for herself. It's still all us. And so I wonder just you know, as she gets to be a year or two years older, do we start around that corner a little bit? And you know, at least give ourselves an inhale? And, you know, and that off?

Scott Benner 39:16
Yeah, no, no, I think that's a that's a great insight is that as they get older, they take on a little more of it. But but but I think you'll learn is there really isn't more of it to take on. It's just that you worry about it less. Because day after day after day after day, nothing goes really wrong. And so, you know, when I tell people it gets easy, I don't mean you know, nuts and bolts gets easy, like diabetes is always diabetes, but decisions need to be made and all of a sudden you just know what the answer is. That's like a great situation like, you know, like, Oh, this happened i bolused for dinner. And they didn't eat this or lately Arden hasn't been eating there's like a bread product and with her, her lunch and very much lately. She's like, oh, by the way, I didn't eat this and I'm like, Oh, that's where most of the carbs was, you know, and, and, and I just go, Okay, do this and this and that. And then it'll be fine. Like, I know how to take the insulin away to make that not a problem.

Jeff 40:15
clean up after that.

Scott Benner 40:17
But prior, you know, years before I would have been like, well drink a juice. And I guess go to the, you know, go stand next to a cop and and find an ambulance. Like, like, I just just wait for death, I guess. And then you know, like, and and now I'm just like, that's fine. We'll just dial this back and dial that back. And maybe in about an hour and a half, you might need to hit a half a juice box, but we won't know till then let's wait and see what this does.

Kristin 40:38
Well, when I first started listening to the podcast, and I was hearing you, you know, describe Arden's agency is in the fives, and we just got into the sixes. And we're just in our fifth year, you know, so it's like, every arc, every everyone situation is a little bit different. And you're not gonna believe this. But Jeff just looked at his phone, and she's 79 with an arrow down. So we might have to pause for a second and talk to our teacher. Well,

Scott Benner 41:05
here's the thing. You can pause if you want to. Okay, but I'd love you to stay on the microphone while you're doing that, because it's good. So what are you gonna do for like, so you're gonna send a text to a teacher?

Kristin 41:16
Yes. I mean, they're eating lunch, not for another hour. So she definitely needs either gummies or I think she has, like a granola bar or something like that. And her

Scott Benner 41:28
is the plan to hit her with enough carbs to catch this without making high or we Yes, we Yeah. bazel to or how would you handle it?

Kristin 41:37
test is drifting down a bit as his text to her. I mean, just even a juice. Juice box. There's one in her Cubby,

Scott Benner 41:45
your your test test is just to doubt about, you're so nice. I would be like, yo, stop everything my kids get my kids trying to die in the middle of English. Okay, so hold on a second. And now, do you test in this scenario?

Jeff 41:59
Well, usually Christians at school. So this is where she would be handling this

Scott Benner 42:03
way to go, Kristen.

Kristin 42:05
And we'll talk about relationships. We're actually in our house by ourselves. We're in a school where there's no school nurse. So it's the teachers or Kristen. And so really, you know, Kristen actually got her job through this condition, because she was hanging out a lot when test is in pre K. I mean, I was commuting sometimes 45 minutes to to another town outside of Asheville. And when she was diagnosed, I was like, well, that's the end of that, you know, and so I double down on being with her and Jeff pays the mortgage with his job. And I was hanging out in the hallways, I've heard so many of your podcasts were like moms are like, peeking over outside. Yeah, like garden garden walls and things and being like, I have to give my kid insulin, you know, but so I was that person for time. While the teachers were getting kind of up on their feet about it. And and so then the director came out and said, Hey, what's your background? And now it's like, well, funny, you should ask.

Scott Benner 43:03
I'm Whatever you need, that I don't need to drive back and forth. I play Jeff, by the way, I don't know if you caught it a moment ago, but you're gonna have sex after this. Did you know that? Kristen just realized you guys are home alone. And you

Kristin 43:17
know, things just go right past. Don't lie.

Scott Benner 43:19
Don't lie to us right now. Kristen. That's what you were thinking, right?

Kristin 43:22
No, we're never home.

Scott Benner 43:26
You only have to try a little bit, man. And you're gonna get laid after this. I'm just telling you.

Unknown Speaker 43:34
I don't know. I think I can.

Scott Benner 43:37
Although, you know, the other day I saw online, the most just wonderful thing a mom put up this little note that said that she was driving in a car talking to the person in the front seat, and her six year old shush them holding a phone like a cell phone with the little speaker at the bottom jammed into her ear. And she said, Be quiet. I'm listening to the Juicebox Podcast. Wow, I was like, Oh my God, my demographic is all over the place. Get that kid some earbuds. Yeah. So I don't know. Does a six year old though what that means I may be I'll bleep it out. But anyway, Jeff, I'm saying you really should put some effort in. So this is over. Here's what I'm getting at. But not the basement wherever you are. Right. Although unless that's what you're up to. I don't

Jeff 44:15
know. The teacher has responded.

I got the big thumbs up. Okay.

Scott Benner 44:20
Yeah. So what? So what did you tell them to do? It's gonna be,

Jeff 44:24
you know, this is a situation where we really don't want her going low. Kristen is not on hand. Her teacher doesn't usually, she's not usually running the show as far as the PDM goes and all that. So we don't really have that as an option to to slow down the insulin. So in this case, because we're here, and we're trying to keep communications pretty succinct. We just went for the juice box box. I think that's I got smart I think the juice box if it's 15 carbs at her, what does she weigh? Like? 4550 pounds.

Kristin 44:54
She's over 50 now.

Scott Benner 44:56
Yeah, it'll probably I bet you that cuts the arrow out. I bet you hits around 70 hangs and drifts and drifts back up. Does that sound like what you expect?

Jeff 45:06
That sounds right, it's been a real slow drift down that we've been watching actually didn't even watch it for a while. But I felt like I should do the right thing and take a look at the number. And they're not eating lunch for another hour is the other thing. That's perfect.

Scott Benner 45:18
And you know what the great thing about this is for people listening that even if this juice box ends up being too much, Jeff can Pre-Bolus a little earlier to cut some of the number out before the food. So there's a way here to balance being more aggressive with the juice right now for safety and for comfort, because we're recording, and at the same time, not let it get out of hand or cause another low before the meal.

Jeff 45:42
Sure, something that we're gonna have to chase double arrows up. Right, right. I don't feel like it's gonna be that.

Kristin 45:47
Yeah, we're in that classic pattern. And it feels like classic to us anyway, because it's so routine that she her biggest art, her biggest numbers are right over breakfast. And you know, we're just so bored with breakfast. So listeners out there if you have any ideas on like, what kind of cuz you know, obviously, the better the protein and the breakfast, the better the morning in terms of blood sugars, but we're sick of eggs, sick of bacon, sick of you know, Turkey,

Scott Benner 46:17
anything else? No kidding. Well, how are you with the other stuff? Like, can you?

Kristin 46:22
So she'll have pretty decent afternoons is what we find? We don't

Jeff 46:26
I don't know, I think you're asking do we restrict anything?

Scott Benner 46:29
Is that? I'm saying? No. I'm saying like, if I gave her three pancakes, which can you handle that? Or is it? Are you not up to that yet?

Jeff 46:36
We have to think about that, you know, obviously and get ahead of it. But yeah, we've done that. When and usually that's on the weekends when we you know, have the time for it. A little bit of POW back and forth. And usually we can flatten that line pretty pretty well.

Scott Benner 46:48
Yeah, I'll tell you to like when you were speaking earlier about what happens when she gets older. What happens when she gets older is you can miss on a breakfast dinner. She's on her way to school, and then send her a text and be like, Hey, Bolus more. Yeah. And it's not this whole thing where it goes through the teacher. Because I wonder, because I felt like I heard in your voice a second ago, Jeff, because I have this feeling too. You don't want to involve the teacher unless you have to because you don't want to like you don't want that light shined on her. Right. Right. Yeah, it's like,

Jeff 47:16
we already know that there's a you know, her alarm is set at 90 at school, which, you know, maybe we should go a little lower, but they're probably already hearing that. And just wondering, what do we do? You know, we basically ingrained it that, you know, it's the lows that we're worried about, right? Do they

Scott Benner 47:31
wait for you? Is there ever a time that they pop up and do something on their own? Or is it always in conjunction with you,

Jeff 47:38
if tests feels low, and she feels her lows more and more, and she actually is taking two guessing her number like she woke up the other day, and she was like, I feel like I'm 93 and even but maybe a soft arrow down.

And she was right on time she was she nailed it.

Scott Benner 47:53
I'm a fan. I'm a fan of that. I used to do that with art and to like to try to teach her how she felt. Right? You know what I mean? Because if you do it enough times, and it's tough to because then the other side of it is I always tell her the way you feel is not important. You know, it's the number it's the number the direction of the speed. Because you can feel great. Then not have a great blood sugar. We had a she went to a homecoming football game the other night. And no lie. The whole day is going great blood sugars are fantastic. I'm telling my wife like this. I'm like Kelsey is gonna be wonderful. We can drop off this football game when we go to dinner or something and it's gonna be fantastic and took her to the game dropped her off, and the CGM just it was done died and it was right up on it. It was right up on the end. And I thought it wouldn't make it till she gets home, you know, and then it didn't. So now she's there. No CGM. So, um, I said to her, I'm like you need to test because, you know, now the CGM is not working. So now the loops not working the loops open. I'm like, I think you're gonna go up based on what happened before. And she said, No, No, I'm fine. I was like, No, no, I meant you're not. And so she tested she was Oh, you know what? I'm 220. And I was like, Oh, yeah, see, because now all the sudden, you know, all the all of our texts going out of nowhere. So we bought we bolused really aggressively. And I was like, so we're gonna test again, you know, probably in 45 minutes. Right. And, and then we texted back and forth. We got her home put on CGM. And you know, she went to bed around midnight and everything was fine. But it just was it was that expectation. Like I have this. It's so easy. I know what to do. And this is how we'll handle it. And then it just all

Unknown Speaker 49:29
fell apart. Back in the wild west. Yeah.

Kristin 49:32
You made me Just think how on earth do people do this solo parenting? I mean, and I'm not saying that like I like I have some kind of I have complete empathy like just such deep concern and empathy for you know, we're a duo and and when she is at home on the weekends or we have a vacation or her outcomes are much better when we're together and We're both troubleshooting. And so while I get a sense for what that must be like, because I am the primary caregiver throughout most of the day, it still just must be very difficult for a single parent trying to manage this or a parent who maybe there's a custody share or something like that, where you have to kind of transition like you were saying those nurse notes, you know, like, you got to kind of injure shift with the kid and then hand them over to, to that other person. It just, I can't imagine, I think that would be a really interesting perspective to, to get a hold of. Yeah,

Scott Benner 50:37
well, I think that's, I think that's certainly true. And also certainly think that it's true that there are plenty of married people who in when it comes to diabetes, and sort of other things in our life are single parents to begin with as well, because people see things as their job or your job, which I don't buy into. And interestingly enough, Kristen, you might not have a ton of appreciation for looking at your life from the inside out. But Jeff's a vet, so he's probably a fairly compassionate person. She would think, right, seriously, right? So you're like, my father would just have like, been looked at my mom been like you wanted kids? You know what I mean? Like, and then that would have been it. And I think a lot of guys are like that, you know, like, that's not my job. I went to work already today, you take care of those kids, or vice or vice versa, like, you know, in a household where even a woman's working full time in the man's at home, it'd be very easy for them to say, Look, that's not my thing. I did my thing already today. And I think a lot of people I think a lot of people live with that. I think there's a lot of people nodding their heads right now thinking yeah, oh, my God, I don't really do much. Maybe Scotts endo was right, when he, you know, back then and it sucks, because there's plenty people aren't. There's plenty guys right now. like, Yo, man, um, you know, it's 2019. And it's a it's a team effort. And I'm in on it, too. But I think both of those scenarios exist. Yeah, you know, and I agree with you. What, what do you do when someone suddenly, like you talked earlier about the anxiety of, you know, being in charge of what it feels like is keeping someone alive constantly, like, I used to explain it when I was really in the middle of it still. And I really didn't have a handle on it. I would tell people, I feel like someone told me that I have to consciously say, breathe in, breathe out, breathe in, breathe out, or I'll suffer, like Damien or like that, or that I have to remind my heart to beat every 20 seconds or so. Yeah,

Kristin 52:33
that's all there was a day. And when test was old enough to go to summer camp for the first time, she was five. So we were still only diagnosed about a year. And that was summer camp. And it was it was a total turning of the tables in terms of her day. And she had three lows in one day, which I don't know the averages for other people. But that just felt that day was just it just stood in my mind is like now life has changed now, you know. And I guess that was the same summer that she had the CGM for the first time I think that's right. And so just that awareness that pushing back of the curtains and seeing what's going on all of the time with the technology and that she had three lows I remember distinctly just being in the car and driving and being like I have to breathe like this should be illegal like I should not be allowed to drive right now while I'm this like hopped up on the fact that my kid had three legs today you know?

Scott Benner 53:34
How much how much of well first of all earlier you said this, you know I have to be somewhere by 1230 is that going to be enough time now I realize I'm going to probably end up keeping to whatever minute you have to leave but what has the your time with diabetes taught you because it's funny when you talk about she went to a day camp and had lows my brain jumps to to shame because you didn't know how to like manage her basal insulin so that she wouldn't get low in a scenario like that. And and and most people don't really write like, you know, they set up their basal insulin to work in most scenarios. And then you hear people say oh exercises and pletely impossible I can't do this. I can't do that. And it's just because they have too much insulin happening and they don't think about it like that. But do you think about it like that now like if that scenario popped up today with the knowledge you have today? What do you think the three lows would have happened?

Kristin 54:28
Um, well she still has we get on Jags you know if she drops she goes up and then she comes back down and I'm and I'll still Yeah, I can say that. I still don't have it as even Steven as I would like it but it but there are some some techniques, some like you're saying the bazel and the, you know, some other things that we do now that has created many more better outcomes. So it's hard for me to

Jeff 54:56
but I think what you were saying with that, if I may speak for you. I don't Which to you and tell me if I'm wrong, is just that you were talking about when she went to camp. And that that was a big difference from the day to day routine. And so, you know, what is diabetes taken from us or from tests, it's a little bit of, um, she has to be with people that that know enough about it, that they can step in and do something. Otherwise, you know, we're relying on the technology from a little bit of a distance, and then kind of dialing it in, Hey, can you give her this juice box without ever really explaining or, you know, having her in the care of someone that totally gets it now, there are a few people, few teachers that have really taken initiative to learn about it. And when she was in those classes felt great about, you know, we don't need to watch it every minute, because they're going to take care of this. But in terms of the nuts and bolts, we still have never really had that handoff, where maybe we had 24 hours, you know, a way and all this time, diagnosed, right? And otherwise, it's either Kristen or myself in charge. And there's never been a moment really where we've said, okay, handoff and someone else make these decisions. And then I mean, I guess that's probably pretty typical. But it's really, I guess, I feel for for tests in a way because we've sheltered her somewhat like we've had her an environment where either Christine's right there or, you know, we're all together or, you know, she and I are together, but never just like, kind of going off grid, so to speak, Jeff, and just being able to manage it,

Scott Benner 56:32
that'll stop, and she won't remember it that way. She's not gonna think of it as you lording over her when she was little, she's gonna think of it as my family was always together. You know, like, it's not, it's not, she doesn't have your perspective,

Jeff 56:47
I see the upsides of that. But like, for example, grandparents, for example, they, they, they are super apprehensive about one on one time with her without us being either right there or, you know, available to respond right and right on a moment. And that's, then it's taken from her, I feel like, you know, they're they, they see the diabetes, and then they see the granddaughter, we see the kid. And then the diabetes is kind of second to that, but I feel like maybe just that one segment, I feel like her friends accept her as a person that has diabetes, not as a condition. But I feel like, you know, there, there are some people that could otherwise be step in and have a role to play that, I feel like this condition is kind of wound a little bit large. And it's, it's difficult to get the right information to them.

Kristin 57:39
And we're still going under, I mean, we're five years into it. So it's kind of the spot where we're still tender about what we're learning and how we're dealing with it. And we're hardening up to like, you know, the future of, of her managing so much more of it. And, and it not being so much of a thing, I mean, I can tell where my stress level has gone down over, over the course of the last year or so. Um, but in terms of grandparents, and in terms of extended family, which is certainly another aspect of relationship to get into, you know, we both have parents on either side of us that also have medical conditions. So a lot of that is, I'm like what I like to call my Oreo years. I'm like, in the middle, you know, my mom is, is having some issues, and then I have a daughter and so who knew that I was I was really gonna have to perfect this thing called caregiving. But, um, but I don't know how how that plays a part. But maybe you could share with us, Scott, when Arden was younger, did you have someone another figure in her life that could just come in and, and take care of things and let you and your wife go out or go and travel? or what have you?

Scott Benner 58:50
Oh, I don't think you're gonna like my answer. No, of course not. And, and at the same time, I didn't see that as a particularly bad thing. So. So I have a little bit of perspective on this, that maybe other people don't. So I

Kristin 59:07
certainly is a luxurious position of mine, you know, to to want to go off. Yeah,

Scott Benner 59:11
no, no, and I don't think there's anything wrong with wanting to go out. And I'm not saying that I'm saying that first of all, I'm a I'm a no person, like I work backwards from now. So my so any question that's brought to me starts it No, like, Can we buy a sofa? No, of course not. We can't afford that. How would we buy stuff and then maybe like 10 steps into it? I think I you know, we probably could, but I and I don't trust people either. In scenarios like this, I trust people find in other ways, but I'm also the kind of person who's like, school nurse, if they were really a good nurse, would they be a nurse at school? Like I don't know that that's even true. It's just where my my know like, and I'm not disparaging school nurses on it, I'm saying is that I always started what's wrong. And so I decided at some point, like we're going to be the ones to take care of this in one day. It won't be like that. But the other thing that I have gotten For me is that I had a moment in my life when Kelly had started working. And I had started staying home with Cole. And he was maybe like a year and a half old or something. And I was doing great. Like, I really felt like I was like he was safe and fed and, you know, learning to crawl and walk, and I was feeding him and going grocery shopping kept the house clean. But it was all very much like I was just doing the things that I felt like I was supposed to be doing. And I realized one day, like, this is not what my wife would be doing that she would just sort of know, organically, what this kid needed, and what would make his life better. And I felt like she was more in tune because she was his mom. And that I had to find a way to be more in tune with it. And more importantly, that I needed to find a way to take joy in taking care take joy out of taking care of him. Like I couldn't look at him as a job, or a burden, or something that I was, like, forced into doing, I had to want to do it every day. And that when I wanted to do it, when I let go of the other things that I thought I was supposed to be doing with my life, I realized these things are just as wonderful and fulfilling as something else that I thought I was gonna do. I really wanted to write a book. And then I realized I'm not gonna do that. I'm taking care of him. I'm raising coal. And it's funny, I wrote a book one day, you know what I mean? And one day, well, like, well, it took six months. But one day, I got to write a book. And it was 13 years after I let go of the idea that I really did want to write a book one day. And so but in now sitting here 20 years later, is my son's 20. My life is completely wonderful. And I enjoyed all that stuff that prior to having that thought, I saw his work in a job and stuff I didn't really want to be doing. So I wonder if the goal isn't to just stop seeing the diabetes as a job, and just start seeing it as something that exists in your life that you can find joy in, and then you get to let that go. And then instead of fighting against it, it's just it's I don't know, it propels you instead of drags you down. And and my other thought about the grandparents thing was this. What if you pull them aside and unburdened them? Just tell them look, this thing is way more complex than you may be able to imagine. And I feel like you're worried about tests, and we appreciate that. But the truth is, no matter how much you worry about it, you're not going to be able to figure this out. So just let it go. We'll take care, we'll take care of it. You don't worry about it. Like give them the give them the permission not to act like parents around her when it comes to diabetes. I wonder if that would work.

Kristin 1:02:39
I think I think we have in so many words, but just being that clear could be very useful. Yeah. Interesting. Listen, I was great. Great advice. Nothing.

Scott Benner 1:02:50
Stopping. What are you doing? You're trying to get us kicked off the internet. So listen, I told my mom yesterday, my mom's in her mid 70s. And she likes to go to the gym. But she doesn't drive. So she takes sort of like a service that drives her back and forth. And she told me she really wants to go to the gym three times a week, but she can only afford to go twice. And I said can you really only afford to go twice? And she's like, Well, no, I'm saving for Christmas and birthdays. And I said Mom, listen to me. You want to give my kids a great Christmas present, come to the house on Christmas. And tell them what great healthier and because you're going to the gym three times a week. Yeah. And explain to them that you're really sorry, but you have a card and a hug and a kiss and a well wish for them but not $100 gift card which by the way they don't need anyway. And and you use that money to go to the gym on Friday. And my mom tried to fight back? Well, I like to I was like, I don't care. Stop it. I was like, take care of yourself first. And and don't worry about us. We're okay. And and I realized that that's information. I'm probably telling myself for the future as much as I'm telling her for now. Because I know how I think about my kids. And I wonder how much I'm going to be able to let go of that idea that they don't need me when they get older, you know, so I don't know, I just think there's a cycle in there. Like a good you can't break a parent from being a parent, but maybe you could at least give them the permission to let it go for an hour. Sure. And tell them Look, I don't want you to see tests as diabetes. And that's happening. Because I used to do it with Arden Arden used to walk in the door from school and I'd be like, what's your blood sugar? The first thing I would say to her and one day I was like, I can't do that, like you no matter how much I'm concerned or worried or care if I'm doing more harm to her by asking that than would be done to her if she dropped over in front of me and needed a juice. So yeah, you know,

Unknown Speaker 1:04:37
you have

Kristin 1:04:39
she's a nutritionist who is also a nurse on a couple of your episodes Jenny, Jenny, excuse me. Um, and so the other thing I wouldn't mind talking about briefly is kind of getting away from the relationship stuff is what do you have you heard or seen anything around Eating Disorders and so one thing like you talked about, we talked about the diabetes so much we certainly do. But I'm even more worried that at dinnertime, I'm always like, well, what did you eat or what what's missing? or What did you have? And so we have such a focus on the food that I'm, you know, she's eight right now. So she's coming into those preteen years. And I just want to get ahead of it in terms of just hoping that I'm doing everything right to get her to have the right mindset about food.

Scott Benner 1:05:32
No, so I completely agree with you and I want to talk about it. But Arden's blood sugar just took a weird turn, and she's sleeping. So I'm gonna go for a second. And I'll be back in like 90 seconds. I'm gonna give you guys a great opportunity, right? feel this pressure. I'm gonna let this record you try to keep people entertained for 90 seconds, go.

Kristin 1:05:50
Okay, we're gonna do that. Here we go. Grab the guitar.

90 seconds.

He has no idea that we're doing this. Well, you just hit the microphone square on. Okay, here we go. All right, you need these? Give us a second audience. All right.

Jeff 1:06:13
They can't play this anyway, because of the copyright.

Unknown Speaker 1:06:18
A chance

Unknown Speaker 1:06:21
to show that you're

Unknown Speaker 1:06:29
free. Each thing I do is just some evil scheme.

Unknown Speaker 1:06:36
And then reframe some

Unknown Speaker 1:06:41
keeps us

Unknown Speaker 1:06:47
free from it.

Unknown Speaker 1:06:51
Joe Coco,

Unknown Speaker 1:06:55
believable you can sang a song when I walked away.

Jeff 1:07:00
Oh, he said to do something entertaining. You know, you only gave us 90 seconds. I don't know what you're alluding to. But

Scott Benner 1:07:07
no, no, that's that's for later, Jeff. But

Jeff 1:07:11
first of all, Hank Williams

Unknown Speaker 1:07:13
was amazing. I came back in the room and I'm reaching for the headphones. And I'm like, are they playing music? And then I realized you were saying I thought how am I gonna lose this podcast and more talented people? Like me.

Scott Benner 1:07:26
So that's that. So I think Arden's laying on her CGM. I think that's what's happening. So I'm

Jeff 1:07:31
better in a second. No blood foot.

Scott Benner 1:07:33
Yeah, well, no, you know what, it's actually the interstitial fluid gets pushed away from the wire. So the so when it sends her blood sugar 60 it's right, the the sugar in the interstitial fluid right around the wire does is 60. And then when you stop pressing on it and stop pushing the interstitial fluid away, and it flows back in and like two more generations of the readings, you'll get a good read equilibrates that's really cool. So um, okay, that was pretty great. Jeez, I'm gonna have to raise the bar on these episodes, or?

Jeff 1:08:04
Well, I'm happy to report that our juice box has worked Good for you. What's blood

Scott Benner 1:08:07
sugar?

Jeff 1:08:08
It did go down to 66. And then it came back up and now at 79. And even guys four minutes ago, so well done equal coast into lunch pretty well, there.

Scott Benner 1:08:19
Okay, so Kristen, your your question about food is, it's very important. So the more you listen to this podcast, the more you're going to hear adults who are in their 30s. And some of them didn't have parenting, the way you're describing or maybe the way I the way I talked about it. And if you really hear what they're talking about, they think when they were Tess's age, when they were 15, when they were Arden's age, they wish their parents were more involved, they may have acted like they didn't want them involved sometimes when they were older, but they they wanted it. And now that they're older, they recognize that they didn't understand diabetes, as well as they thought they did when they were leaving for college or at a football game or something like that in high school, and that they wish someone would have stayed on him. So I think it's a classic parenting thing, right? If to be interested, you know, I see my job as a parent is just saying the same thing a million times without getting annoyed by it, right? Because eventually they hear it. And that's true. When you have one test is 20, you'll realize you said something 1000 times, and one day, it just hit her.

Kristin 1:09:24
Yeah, we think we thank her for taking good care of herself. Like every time she does even the smallest thing we say thank you for taking such good care of yourself. That's love. I hope that that's in there somewhere.

Scott Benner 1:09:35
And it all will be here's what I know that like I used to take my son to the zoo, when we were just together by ourselves. And we would do things like just sit with our lunch and watch Tigers eat. And you know, and you know, talk to him about being polite to people and that sort of stuff. And if you ask him about it now, he doesn't really remember any of it. But yet, the impact I thought those moments would have on him seems to be have worked, because he is the person or close to that I was hoping he could be. So I think you don't get to see it the way you expect later, they don't sit down one day and tell this great story about this time you and them did something together, or my mom used to say to me, thanks for taking good care of myself when I was younger, they might not remember that. But I think it still works. It's not your expectation for what that'll look like when they're older as far as their memory, but it works out in their actions. I think

Jeff 1:10:28
it's in there as a more foundational thing, I guess.

Scott Benner 1:10:31
Yeah, it's like a painting basilic. You know, it's like a painting like you paint the first line on the canvas. And you know, when you're done, you don't see it, but it would look different if it wasn't there. Right, you know? Yeah. Oh, thank you. I just, I just, there are sometimes I say stuff. And I think like that was just one of them just as like, Oh, that was good. It was more fun that you said it out loud. Because I had never said that before. until just now. Like, that's why I love these podcasts. I've never once had that thought my entire life until just now. But anyway, we'll spend, please, I'm going now, what I was gonna say about the food is you're 100%. Right? You cannot create an adverse relationship between food and your kid. You do not want to get into a situation where they're like, I don't want to Bolus so I'm not going to eat. So if you the way I think about that is, you know, sometimes hardens, blood sugar is higher than I wish it was when she ate. And I don't say stuff. Like, you can't have that because of this. Right? Sometimes if it's really bad, I'll say look, we have to Pre-Bolus here and we have to wait. But we're definitely going to eat it. And sometimes she'll go, nevermind, I'm like, No, no, nevermind, we're going to do it. You know, like, let's do it. But right. But if the difference between her blood sugar being 180 when this is over, or 100 if the difference is I have to make her feel bad about herself to get her to 100. I don't I go for I take the 180 take the 180 Yeah, right. Right. So, and again, that's just going to be the same thing. You're just you're just doing these things over and over and over again, hoping they come out. Right. I think that where people go wrong is they expect something to happen immediately. Like I get. Do you have any idea how many times people say to me, I would like Arden to come on the podcast, because what they want to know is Ardennes. Okay, so they can believe their kids are okay. Like everybody wants it right away. You know what I mean? Like the answer when I talk when I talk to people privately, you know what they want to know, when you talk about insulin? How much? How long? Tell me Give me a number, huh? And I'm like, there's no number. Like you'll figure it out in 15 minutes. 30 minutes, 20 minutes. I don't know what your Pre-Bolus says you're gonna have to figure it out. How much to give. I don't know how much to give like you figure that out. But that's what but what you see when you hear those, please have our non to tell them by the way aren't done. When I come on the podcast, she doesn't even think of us all right? It shouldn't even think about diabetes, the way you guys think she does. She's, she's pretty free and clear in her life. And, and the other thing is, the insulin when you when you hear people ask about that, what they really want is they want comfort. They're like, just please show me something that tells me this is going to be okay for me. And that my kids not going to be the one who, you know, it goes wrong for like, I feel like that's what they're asking me for. And I can't do that. All I can tell you is that you should do whatever you think is best and do it every day the best you can. And if you're lucky, it'll work out. You know, I mean, there's no, there's no. What's that song? I never promised you a rose garden. Right? Yeah, like life isn't. I mean, you don't don't

Jeff 1:13:40
be asking us for requests

Scott Benner 1:13:42
you when you when you in country music, I can dip into what I heard my parents listened to when I was little. But you know what I mean? Like, there's no guarantees that any of this is going to work out. So I think the best you can do is the best you can do. And if you really can be honest with yourself and realize maybe sometimes the best you can do, you're not doing I mean, then if you really want to make an impact on it. Don't ask another person to tell you it's gonna be okay. You try to make it okay. Right.

Kristin 1:14:11
And that must have been also what your wife was saying to when you would say Oh, explicative because you just looked at the phone and it didn't report to you what you wanted. You know, so that's the same thing as that. Take the negative try to take the negative out of it. And I don't I don't ever tell test. This is a good number. This is a bad number. Numbers are just numbers, you know, and we're just dealing with them. At least I tried to say that but it's just human nature to be kind of shocked by something and you have to know

Scott Benner 1:14:40
Yeah, but you can make it go away. Like you really can some of it's just time in the simulator. You have to do it enough times. And sometimes it's somebody to help you I never even consider that Arden would think of me as saying that, you know the same as being like a bad like, you know, reflection on her. I never even thought of that in that moment. But I could totally see it now removed It, you know, and so you have to ask yourself sometimes, like, what am I doing wrong right now? Because you're, you know, here's how I think of it. My youngest brother Rob, and he's a great guy, but he was always in trouble when we were little. And I used to think that Bob had two states of being Bob was either in trouble, or about Bob was either in trouble, or, or you were about to find out Bob was in trouble. Like, there was no like, he was never not in trouble. You just were aware of it, or you weren't aware of it, right? Like he hadn't gotten caught yet kind of an idea. And I think that about like me right now. And you and everybody listening, we are screwing something up right now in our lives. Always, like we're always doing something that's not exactly what we mean to be doing. Or isn't being received by the people who we love the way we think it is. You know what I mean? Like, do you ever look at somebody and then they're doing something and you think, Oh, I know why they're doing that. It's because they're tired. But the truth is, there's a whole other reason why they're acting that way that you don't know. But you make this assumption. And then once you make the assumption, you believe you're right, then you project that assumption on to everybody else. And you go along, thinking, yeah, I'm doing great. But how many people do you see from afar who you're like, Wow, what a mess, their life is, right? How do they not see that? And the truth is, is because whatever you think today, Jeff, you trust. And I really believe that's around like sanity. Can you imagine if you were constantly questioning every thought you had, right? You'd be in action, you wouldn't be able to move. So we as people, as humans, we just innately believe in ourselves. But once in a while, you have to step back and say, I bet I'm not right about everything. I wonder what I'm seeing reflected in for me from the people I care about. Those are probably the things I could be working on. And and just keep doing that. Otherwise, you will get on this really ignorant path to destruction, right? Like you're just gonna, you're gonna just anxious Yeah, yeah, you're gonna drive headlong mindset. Yeah, I'm right. I'm right. I don't have to think about any of this. Just keep going. And then one day, when it all falls apart, you're going to go, I don't know what happened. You know what it means? So, for a person who's not in any way religious, which I'm not, I just realized that everything I just said sounded like religion for a second. But I think you have to just step back a little, yeah, wonder what it is that you're not doing that you could be doing and do it. Because whether you want to believe it or not, with a young child, this time of your life, from when they're born to when they leave for college, it's a blip. And I'll tell you get in what you want to get in now. Because, you know, once they hit 18, you don't have a lot of opportunities to make adjustments anymore.

Jeff 1:17:44
Grabbing a field, the days are long, and the years are short. You

Scott Benner 1:17:47
need Yeah, oh my god. I said that to one of my daughter's kids one time and friends. And she was just like, that's so deep. And I was like, that's not really. But I just, you know, I said like, you know, how would you know how a day feels like it can take forever, but a month goes by like that. And it fried their minds. They're like, Oh, my God, I've noticed that.

Jeff 1:18:04
And there's always a little truth. In cliche,

Scott Benner 1:18:06
of course, you listen, you got to get the car running as right as you can before you get out on the track, because you might not get time to pick. And so you know, once that kid leaves your house, the mail, there aren't gonna be a lot of pitstops after right. That's all. So don't waste this time. Please, I talk so much I'm available. I'm likely to say something reasonable once in a while if you're talking all right. I appreciate that a lot. So do you have to go Christian, are you

Kristin 1:18:33
Yeah, I've got a couple more. But I mean, we've covered a ton covered a lot

Scott Benner 1:18:41
you guys got got me going. And I feel like I feel like we were doing like a talk show on like, remember when we were growing up like channel 48 or something like that, I really felt like we were doing that, like in the middle Glen Campbell came on. And I was like, This is exactly like the TV my parents watched in the 70s.

Jeff 1:18:58
pot, it's great to have a peer group. I think you know, this, but and that's something I think that we would benefit greatly from but you know, Asheville is a fairly small city. And so we haven't really reached out to the local folks. I mean, we've done jdrf events and things and but in terms of at the level that we want, you know, where it's just an honest conversation and, you know, you just step forward with who you are and your experience, that that just doesn't, doesn't really exist for us. So this is this is really great.

Scott Benner 1:19:28
I appreciate that. I also don't think it exists for anybody. I think that as soon as you put people in a room and they can see each other's faces, then there's a feeling like you need to represent yourself well. Like if I don't do the podcast looking at anybody, because I want them to feel like they're just a you know, detached voice talking to another detached voice so they can be honest. Yeah, Jenny and I see each other when we do the pro tips episodes, but that's just for timing. That so that I can see that she's not finished talking. I don't talk over sometimes I talk over people because my In my mind, I'm like, ooh, they're done. And then I like conversation to flow quickly. So I jump in, and then they're not, but where we lose that we gain a feeling of anonymity, I guess. And, and allows people to be more honest while they're talking. So just keep listening to the podcast, you don't need to go. Sure. Yeah, I mean, what are you gonna go to a thing? They're gonna make you bring coffee, Jeff? Well, you know,

Unknown Speaker 1:20:22
make him answer that question you

Scott Benner 1:20:23
don't need, you don't need more to do, man. You're busy, you know. So where do you imagine if I can ask? Can you imagine that five more years from now, it's not gonna feel like this, are you really concerned that this feeling doesn't go away?

Jeff 1:20:40
I believe we're on trajectory for her to, to take over. In a part of I think that the brilliance of the age that she's been diagnosed if she had to be at a young age is that she doesn't really have to do that much other than to do all these things with the site changes and put up with with a lot. But she doesn't really, I think, identify with how you described Arden that, you know, diabetes doesn't define her and she doesn't really spend that much time on a day to day thinking about it. So to me, I know that she's got it, I know, she knows all these terms, you know, she's doing her own PDM, she'll probably treat herself for lunch, as long as she has an adult watching her. But at some point, she is going to have to step up and and react to the alarms and not just wait for someone to come to her with juice box. And so I see her as intellectually there. But you know, emotionally to really step up. And you know, which is she going to respond to an alarm at night? Or is it going to be still relying on us to come in and say, Hey, you know, wake up, drink this juice and go right back to sleep.

Kristin 1:21:46
Jeff is the optimist in our relationship. I could say something more along the lines of, okay, five years, she'll be smack in the middle of her teenage years. She'll be more responsible than most, but she'll also have a really big rebellious streak. And I don't know how that will manifest. I don't know, if she'll be the kind of person who gets really motley and moody and doesn't want to you know, she wants to take it out on her diabetes, or will she want to, to be the one who who keeps it all together? And it's a question. It's a good question. I mean,

Scott Benner 1:22:25
yeah, well, so it's so funny, because here's my response to both you and Chris. And I'll start with you first. Because I'm in a T shirt cliche you write. Worry is a waste of imagination, you have absolutely no idea what's going to happen in the future. And you trying to imagine what is going to happen is a fairly big waste of your time. All right, okay. She may or may not be all of those things, or something you can't even think of right now. Like, don't forget right now. It's just the three of you, she's gonna go meet another person, she'll have a different idea. She might go down a different road, she might figure something out. You know what I mean? Like, maybe she'll just come home one day and be like, Whoa, I can't believe it. But I would like to take care of my diabetes now. And I know what to do. And I really appreciate you guys, but get out of this. But still help me a little bit. And Jeff, but you said is interesting, because you are looking for a moment where she's just like, I understand this. Let me do it. Because you're worried that one day she'll leave the house, I'm assuming, and not understand it. And I think that that's a bit of folly, too. Because my son and I FaceTime while we're on FaceTime, we went to his baseball game the other day, and we had dinner afterwards. And there were things he was saying that I was like, wow, like that kids really growing and learning and like, listen to that, like thoughtfulness from him. And there were moments where he was saying something to me. And he needed me to tell him if he was right or not. Hmm. And he's a bright kid taking a tough major. And I think if I dropped dead right now, he he'd have an okay life. But there are still moments where he looks at me and says, I need to understand if I'm thinking about this right,

Jeff 1:23:58
instead of advice. But what

Scott Benner 1:24:00
I'm thinking is around the diabetes, I think it's sort of, um, I sort of think it's a false narrative, that idea that one day like a switch will get flipped, and then they'll just do it on their own. I think that you are involved in something that you guys might be connected on for a really long time. And again, I think if you listen back to some of the people who have struggled as adults with diabetes, their parents had this cord cutter thought in their head, like, Oh, she's got it now it's okay. And the truth was, the kid didn't have it and also didn't have the, the guts to look at the parent and say, Look, I know you want to be out of this, but I I don't understand yet. And so I think it's a I think that the amount of interaction that we have with our kids as they get older lessons, but I don't think the need for it lessons. Hmm, that makes me say,

Kristin 1:24:53
yeah, there's there's a lady we have met through our local jdrf and she just sent her her son When the kid to college, and you know, he fell asleep at night, and had a pretty shocking low, and she could still see it, whatever three cities over, you know, and, and so she's calling and then she she calls the the door manager or whomever to go and knock on the door to wake them up to get them some sugar. And I was just horrified at that story because I was just thinking, maybe maybe fantastically that, you know, I do look to test to be able to take care of that I cannot be with her on that I'm not her outside pancreas, you know, like, I'm trying to work myself out of a job.

Scott Benner 1:25:39
Well, and if that makes you feel any better to know that I thought that story was pretty cool that like there was someone to call and they went and helped her, like, hit me like, if you're hoping that your kids never gonna have a low blood sugars and adult that they don't, that they aren't aware of. I don't think that's something you should be hoping for. I don't think that's going to happen. And I don't think that everyone's always going to hear the alarms. And I think that everybody is always going to need help. And I think that aside from diabetes, people always need help. We don't admit it, really. But like, I mean, like, there's no day that goes by that you don't need somebody assistance with something. And life is always sort of better when there are other people involved anyway. So maybe it'll be your daughter's roommate, or you know what I mean? Like, maybe it'll be maybe you'll I don't know, but I couldn't wake garden up with a bullhorn, to be perfectly honest with you. But seriously, I mean, I could walk into a room and begin to scream. And should you ever tried that theory, that seems cruel, so I have it, no, but

Kristin 1:26:35
I've taken tests out of bed and set her up next to the bed and like put clothes next to her, you know, assuming that she's gonna get dressed and come back in the room, and she's sleeping on the floor. Like she just slid down the side.

Scott Benner 1:26:47
Listen, if you want to feel hopeful realize this, no matter how you think we got on this planet at one point we got here, and we didn't even speak. And now we can get into a tin can and fly all around the planet. So people have a way of persisting like, you know, I don't want to quote Jurassic Park, but life finds a way. And so most of people living with something, they find a way to live with it. And then from there, whether or not that means you're burdened by it, or you're enlightened by it, that ends up being a personal decision about how you say it. And very similarly to me looking at like taking care of my son for that first year and a half as a job. I just decided not to see it as a job anymore, I decided to see to something that, you know, I started thinking of like, vacuuming the floor is positive, because, you know, it felt like a waste of my talent. But at the same time, I wanted my kids to appreciate a clean house because I thought one day, that meant they'd keep a clean house of their own. And I visited my son at school the other day, and he keeps a really clean dorm room. And maybe I had something to do with that. Maybe I didn't, but I get to think I did so

Jeff 1:27:57
that we had 20 minutes to spare before he showed up and

Scott Benner 1:28:00
he doesn't care. He doesn't care what I think. So there's no way he would have cleaned up before I got there. So but you don't mean like there's just these little, you're planting seeds along the way. And some of them will grow trees, and some of them won't, but you're not in charge of which ones growing, which ones don't, you're just in charge of planting the seeds.

Jeff 1:28:17
It's a weird condition to because, you know, part of you part of me has this faith in the future that you know, some of the technology is going to connect and it's going to work certainly and and so there's there's that, you know, obviously we can't predict when that would be or what exact moment that's going to be I have a feeling it's going to be gradual, and we'll never really witness it or observe it and then bam, it'll be totally different.

Scott Benner 1:28:37
That's how everything happens. Everything happens like that slow and steady, slow and steady. Then a new person comes in. They don't even know how what a great advancement they've made. You and I don't ever think about boiling urine to find out what somebody's blood sugar is. But people live like that for a long time. And you know, like Cirrus pharmaceuticals just came out with this glucagon that, you know, they're it's a it's approved for emergency use right now, but their nasal? No, no, this one's a pre mixed injectable. So you never know if somebody won't take that one day and find a way to put it into a closed loop system that when your blood sugar gets low, it just gives you a little bump of glucagon. Yeah. And then your liver goes, Oh, you need some sugar, here's some glucose. And that's it. Maybe that'll be it. Maybe it'll just be that your daughter will be able to have a 58 that's fine with her and she'll be able to do a little bump of like a mini glucagon bomb glucagon pump. And just like you know, just like he would inject the insulin, you inject a little bit of that. And there are so many things that are going to happen. Even just with closed loop systems. You know, they sometimes can't stop the lows, but they can shut insulin down. So maybe she'll get into the 50s and I'm sure she will while she's off at college sometime, but maybe she'll be wearing you know, on the pods horizon, and it'll just shut her insulin off,

Jeff 1:29:52
but not the 20s or 30s.

Scott Benner 1:29:54
Right and it'll keep her from actually having a seizure or being you know, it's not going to be a great morning for her when she wakes up but she'll be Live, and you know, and she'll, she'll move on. Like, you don't know what this stuff's going to be. And again, I think trying to imagine it is, it's counterproductive to you being happy today. And live in the moment. That's it. There are a lot of T shirt slogans in this episode for sure. And I have to be honest with you. It's a we're very close. I'm very close to calling this episode either robot test testing, or, or t shirt slogans bound. I'm not sure which it's gonna be. But I really enjoyed this. And you guys were terrific.

Jeff 1:30:30
It's been great for us. We've been looking forward to it. I know. We set it up a long time ago. And it's kind of been in the back of my mind. And, you know, we've we've really enjoyed the show have learned a ton. Interestingly, we actually have an endocrinology appointment later on today. So I feel like we're gonna be having dinner tonight like with mind's blown like where what distance have we traveled today together? And where are we? And it'll feel like, like a journey, I think, what's your expectation for a Wednesday today when you get there? I'm gonna hope for

Scott Benner 1:31:02
six 7.9 6.9 ish. Well, she

Jeff 1:31:03
was That was the last one then three months ago. So I'm gonna say that I don't entirely trust the the readings that that for the a one C, I think we're coming in a little bit lower than then what the clarity tells us. So thinking 667 would be great. But obviously you fear that that what if it's a seven one? And obviously, we'll just keep on keeping on if it is, but

Scott Benner 1:31:26
it doesn't matter. But I think the truth of vigor truth is, and this is me, somebody will see this as me blowing my own horn. But I think if you keep listening to the podcast, your variability will get better. Your timing range should get better your blood urine and your one seal just drop it all just sort of start happening. And I wouldn't

Jeff 1:31:42
we need a way for Kristin, spend more time with the podcast, you know, cuz for her to listen to it with tests in the car, and they we live outside of the city. So they spend 30 minutes in the car. You know, for me that 30 minute drive is easily a podcast, but but I don't think Kristen gets the time. Well, Christina, the only thing

Scott Benner 1:31:59
I can tell you is that I know your sensibilities may be different than others, but a lot of people listening or listening with their kids. So I know I know a woman who gave this podcast to her kid. And that's what actually got his care moved into his hands. Hmm. So, you know, I don't know if I say stuff. I think the stuff you're worried about her hearing. She might not understand anyway. So that's pretty much it. I don't know. Like if Do you think it's because do you not want her to hear something? I should have asked you do you know? Do you not want her to hear something sexual? Or do you not want her to hear something that might be about diabetes, but not positive?

Jeff 1:32:36
The whole waking up dead thing is weird.

You try not to remind them about that. Right? So

Scott Benner 1:32:43
so let me uh, so as we go, I'm going to share this with you. And a woman who was a huge part of the online community back in the day and she I still see her there once in a while told me the story. She said that she kept the idea that there was a scenario with insulin where you could die from her child. Never ever told him. And one day, she got caught in a scenario where the kid they made dinner gave insulin, she had to run out with another child. So she looked to her older child 1617 years old and said, Listen, I need him to finish that food. And the kids was like, Okay, great, no problem, I'll make sure you eat it. Well, the kid didn't want to eat the food, the mom left and the older sibling, you know, told them look, eat that or you're gonna die. And that's the first time the kid had ever heard it. And when she got home, he was sitting on the floor, a mess, crying and blubbering. I don't want to die, blah, blah, blah. So I don't know that, you know, in third grade, she needs to understand the full weight of it, but I don't think it hurts for you to start explaining to her that it's important for you know, safety reasons, maybe however you come up with saying it. Because Because what you want is one day for her to put on a new kind of pump and look at you and go, it's just gonna be alright. And I go No, no, no, maybe. Is it going to kill me? I'm like, No, No, probably not. Like you want her to be able to roll with that idea not to be like put off by it because you don't want her to be somewhere one day when someone who does understand how insulin works completely decides to tell her right, you know, they mean like to me that's a lot like sex. I I prefer my daughter understands it leaving the house then when some when some crazy 13 year old boy tries to explain it to her. So, you know, I don't know it's up to you. Obviously, I'm not making a judgement. But I really think like, I think you got to teach her the whole thing.

Unknown Speaker 1:34:39
Oh, yeah, we're will confront Well, we'll do it all. I'm sorry.

Scott Benner 1:34:42
I could I could start making test friendly episodes, but you might be the only one that sensitive. You might be the only one listening Chris.

Jeff 1:34:53
He hears worse on day to day I'm pretty sure.

Scott Benner 1:34:56
Of course she does. You guys are terrific. I really will take

Jeff 1:34:59
apart Nice podcast. Sure,

Scott Benner 1:35:01
yeah, yeah. Would you just yeah, just I'll make an extra day in the week and get right to it for you. Yeah,

Unknown Speaker 1:35:04
that sounds great. Thank you again, thank you.

Scott Benner 1:35:10
This episode of the podcast was brought to you by the Contour Next One blood glucose meter. And I'd like to tell you a little bit about it. So hang on for just a second, and learn with me. Contour for your girls, the spelling, Contour. Next one.com, I did it. co n POURX. t. o n e.com. When you get there, here is what you're going to learn. First of all, the Contour. Next One has its own diabetes management app that's available for iPhone, or Android. And it's amazing. It's also compatible with the Apple Health kit. For those of you with the apple, you know what I'm saying? This app is going to help you keep track of your blood sugars, those of you who don't have a continuous glucose monitor can still get a lot of important information from your finger sticks. And that information is going to be actionable. For many reasons. One of them I may be possibly in my opinion, the most important reason is that the Contour Next One blood glucose meter is accurate. Super Duper, Uber accurate. Now that's a technical term that they use to rate meters. It's super duper, Uber. They're super duper Uber, they're superduper. There's just Uber, then there's mid level, not so great. It's a very weird scoring system. This one's at the top, super duper, Uber accurate. The Contour, Next One blood glucose meter, you have to check it out. I tell you all the time, it fits in your hand nicely, and it's not very big. So it's a great mix of doesn't take up a lot of space. But I don't fumble with it because it's small. And the test trips. I just love them because they're Second Chance eligible. No, I mean, you go and you try once you don't quite get the blood drop. You can go back again, without wasting a test trip. It's excellent. All this is a Contour Next one.com you know what else is there? A little button that will tell you if you can get a free Contour. Next One meter now everyone's not eligible, but a lot of you gonna be so give it a click and find out the rest of you. You're gonna have to ask your doctor for that Contour. Next One blood glucose meter, do it. Stop walking around with that old nasty meter you've been using forever, you don't even know if it's accurate or not. You've no idea how long ago to somebody developed that thing you got in your pocket 10 years ago, you really want like 2010 meters when you could have you know, superduper Hooper, let me just finish up here by telling you about touched by type one, please, please, please go to touched by type one.org to see the good work they're doing, even in these tough times. Touched by typing needs you more than ever. So go check out what they're doing and see if it doesn't touch your heart. Hmm, got your heart. That's right. I feel like you see what I just did there. I mean, honestly, at this point, now you owe me going to touch by type one.org because I mean, I've made a connection here. Touch by type one. They're a great organization. Just go check out what they're doing, see if you're not moved.

So I want to thank Kristin and Jeff for coming on the show. They did a really terrific job. And they set all that up all that technical stuff that they did on their sites that two people could have two separate microphones and sound super clear and be on the podcast. That was them. That's how badly they wanted to come on the show. And I really appreciate it. What else I need you for here. Oh, leave a great review on Apple. I am on Apple. One thing on Apple podcasts if you can five stars say something really thoughtful and heartfelt about the podcast so that other people can find it. Thank you so much for sharing the show and for listening. June 2020 was the most downloaded calendar month in the history of the podcast eclipsing seriously eclipsing every other month before that can only happen because people like you share the show with someone else. So I really appreciate that. Thank you very much. I just I don't know what to say it was was really cool. Hey, well I've got you if you have a great doctor endocrinologist, nurse practitioner and you'd like to share it with someone else could a juice box Doc's dot com and you can just send in your information you'll see a great list of doctors all around the world that other listeners wanted to share with you. And if you have one and you'd like to share it with them, send it to me right through juice box Doc's calm. Also for the diabetes pro tips if you just want to revisit or share diabetes pro tip calm you don't have to go back into the podcast app to find the pro tips diet. B's pro tip.com leave off the last test for I mean, I don't know just there's no s at the end of this diabetes pro tip. Anything else? Huh? Me bouncing the microphone against my face trying to decide if there's anything else. I think I'm done. All right. I'll see. I think there might be one more episode this week. So check back by