#353 Quite a Pickle
Scott Benner
Diabetic Dyl Pickle that is…
Dylan is a young man living with type 1 diabetes, hypothyroidism and fibromyalgia. He also shares his experiences with the world.
App is free & already on your iPhone ⤴
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Pandora - Spotify - Amazon Alexa - Google Podcasts - iHeart Radio - Radio Public or their favorite podcast app.
Check out the Diabetes Pro Tip episodes and Juicebox Docs
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends. Today's episode of The Juicebox Podcast is sponsored by the Contour Next One blood glucose meter. And by touched by type one. You know what? I should have said that backwards I'll tell you I think that one touched by type on has buy in and be Why? And I said this and buy and I think it ruins the flow of language. Watch this Hello friends. Today's episode of The Juicebox Podcast is sponsored by a dozen hidden works that way too I say touched by type when I go by touch by type one. Today's episode of the Juicebox Podcast podcast is sponsored by there's no way out of this is there Hold on a second. And how the music's playing. I gotta think faster. Well, first of all, this episode of the podcast is with a young man named Dylan and he is absolutely delightful. Dylan has type one diabetes, hypothyroidism, and Fibromyalgia is a wonderful Facebook page where he's trying to tell people about type one diabetes, and he'll explain about some of the experiences both good and bad he's had trying to share been pushed around a little bit online. But I think the way he handled it is really excellent. I want to tell you that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, please always consult a physician before making any changes to your health care plan, or becoming bold with insulin. Right now how do I talk about the sponsors without saying by and by consecutively? Today's episode of the Juicebox Podcast game sponsorship from touched by type one, and the Contour Next One blood glucose meter, please go to touched by type one.org or Contour Next one.com. For more information, you may even be eligible for an absolutely free Contour. Next One meter you'll find out the link. And they're also linked in the show notes of your podcast player at Juicebox. podcast.com. I mean, whenever you're ready.
Dylan Giuliano 2:14
I think I'm ready.
Scott Benner 2:16
I bet you are. Don't worry. It started off with just start off with your name.
Dylan Giuliano 2:20
Hello, my name is Dylan Giuliano. I've had type one Davies for four years and I work for jdrf. I am a Youth Ambassador. And I have a Facebook Instagram and YouTube page called diabetic dill pickle.
Scott Benner 2:36
So you are the kid that people called diabetic dill pickle. Yeah, that's pretty cool. So I see the word play. Right. Dylan? dill pickle. I'm right there. But where does that come from though? Is that something from your life? Or did it just come up to you when you're trying to think of a name? How did that? How did you end up with that?
Dylan Giuliano 2:54
Well, technically, I just thought of it in my head. My parents my just thought of it was actually technically
Scott Benner 3:01
my nickname. That's what I'm getting at. Like so people called you like dill pickle before?
Unknown Speaker 3:07
Yeah.
Scott Benner 3:08
Yeah. You know what I call Arden?
Unknown Speaker 3:11
What? boogers.
Unknown Speaker 3:14
It's funny for no
Scott Benner 3:16
for no reason. She doesn't have like, a bunch of boogers in her nose or anything like that. I just call her boogers. She walks into a room and I'm like, hey, boogers. What's up? And she just like, hey, and then it goes on from there. My wife actually said the other day. Why do you call her boogers? And I was like, I don't know. Don't you like it? And she goes, No, I'm like, No, no, I love it. So anyway, there's worse nicknames, right? Yeah. Her nickname seems to to move around a lot. We used to call her boo when she was little like before the monsters movie. And then they started using it in the monsters movie. And I was like, I can't do that anymore. It seems like we're ripping off Pixar. And we've gone through a number of nicknames. My brother has the best nickname in the world. And I'll tell it to you right now, but it's completely out of context. And I won't explain to you why it's his nickname. Okay. Okay, this is back when he was like 14 or 13. Originally, his nickname was good job, Bob. But eventually it became good job Bob the half naked Bruce Lee boy. And I can't tell you, but you can try to imagine how you would come up with a nickname where you're naked and Bruce Lee. half naked actually. all I'm gonna say to you, Dylan is that I don't think you should practice your karate in front of an open window without your shirt on. Okay. Okay. Good for you. Alright, man. So listen, how old are you? I'm 12 Oh, cool. And how? How old were you when you were diagnosed?
Dylan Giuliano 4:47
I was seven when I was diagnosed. Do you
Scott Benner 4:49
know that? That's been five years.
Dylan Giuliano 4:52
Well, actually, it's four.
Scott Benner 4:54
Okay, my math my math is wrong.
Unknown Speaker 4:59
Yeah.
Unknown Speaker 5:02
So, you're
Dylan Giuliano 5:04
all good. Well, technically, I was almost a basically, I was almost eight when I got
Scott Benner 5:09
sick. So my math is right. Your assertion isn't? Right, right. I so, so diagnosed around the time you were towards sort of the end of being seven. And yeah, and now you're 12. How are things? Well, no, wait, I was gonna ask you one thing I'm gonna ask, do you remember being diagnosed at all?
Dylan Giuliano 5:29
Yeah. So basically what happened? I was told the kid, I've been in many different rooms, like probably like three or four rooms, because they didn't know what one to choose me. And so I had in, they checked my blood sugar, and I was like, 590 it was, it was crazy. And they just thought I had the flu, but
I guess not.
Scott Benner 5:57
Yeah. So obviously, right. So up until or if you just had the flu, then this has just been one horrible practical joke on you for the last five years, or four years. Excuse me. But so you went into the hospital because you had like flu like symptoms
Dylan Giuliano 6:12
are basically my mom took me in like three or four doctor visits.
Scott Benner 6:18
So over time, she saw that you weren't feeling well, and she kept taking you back. And they weren't really doing anything about it. And then Is that it?
Unknown Speaker 6:27
Oh, yeah.
Scott Benner 6:28
Yeah. So you had to go a number of times before you before they could come to a conclusion. So it took them all the way to the hospital to check your blood sugar? Yeah. Wow. How long are you in the hospital?
Dylan Giuliano 6:40
Um, maybe like a week? Yeah, about a week? No kidding.
Scott Benner 6:45
To turn it into like a little vacation or were you just not kind of feeling better fast enough.
Dylan Giuliano 6:51
I just really wasn't feeling better fast enough. That sucks. How do
Scott Benner 6:55
you feel now?
Dylan Giuliano 6:57
Right now I feel way much better. Like I still have like a couple diseases mine but not all of them. Like I have fibromyalgia and low thyroid and stuff like that.
Scott Benner 7:12
You're just collecting, like, autoimmune issues as you walk down the path?
Unknown Speaker 7:18
Yeah.
Scott Benner 7:19
There's one. I'll take that one with me. So Alright, let's let's take a second for a second because you mentioned some interesting stuff. So hypo thyroidism. Yes. Okay. And you take Synthroid
Dylan Giuliano 7:33
Lords are low thyroid, and yeah,
Scott Benner 7:38
yeah, I do take a secondary medication. Like cider mill or no, no, just just the one. Okay. And what does it feel like? Well, how I guess what age did you start taking that medication?
Dylan Giuliano 7:53
Um, if I could guess, maybe
Scott Benner 8:01
this month, months ago, just months ago, actually. So within like, the last year you found out about hypothyroidism?
Dylan Giuliano 8:07
Yeah, gotcha. Just about a month ago, just about a month ago.
Scott Benner 8:11
Oh, she's very recently.
Unknown Speaker 8:12
Yeah. How were you
Scott Benner 8:13
feeling prior to being diagnosed?
Unknown Speaker 8:18
Um,
Dylan Giuliano 8:22
like, my stomach and stuff like that was hurting and I barely couldn't drink. Well, I barely didn't eat. I was just keep on drinking and drinking. just kept taking naps and stuff.
Scott Benner 8:36
stomach pain and tired, right? Yes. Yeah. Okay. So Arden has hypothyroidism too. And that's exactly how it presented to her. Her stomach hurt all the time. She actually was still hungry. So she ate through it. And
Unknown Speaker 8:53
oh, wow, she
Scott Benner 8:54
was incredibly tired. And she would have really and please, you can tell me if you want to, but she had a situation where she wouldn't go to the bathroom for a number of days. And then all the sudden she would go a lot if you know what I mean. And yeah, it wasn't exactly pleasant. Did that happen to you as well? Yeah. I see. Is there any chance that this episode is going to be called? diarrhea dill pickle, now maybe? I wouldn't do that to you Don't worry don't. But it's making me happy thinking about it. So it's really horrible. Like when your thyroids not operating properly. And you don't have the medication. It's crazy. Arden was exhausted like she could barely lift her head up sometimes. I don't know how she went to school some days and really terrible stomach pains. Wow, really, really bad. And then of course, you know, she'd eat meat need nothing would happen and then all of a sudden her body would just, you know, expel everything and then The process would just start over again. And there was no real relief from it. And, you know, we had you know, she gets tested for, you know, just like most people who go into their endo appointment shirt, her thyroid levels are tested yearly. And you know, the year prior, there was nothing. Had you ever now knowing about it the day ever that you know of see any indication from your blood test that something like this was coming?
Unknown Speaker 10:25
Yeah.
Scott Benner 10:27
So you could see your levels changing over time?
Unknown Speaker 10:29
Yes.
Scott Benner 10:30
Okay. So you didn't suffer too long before you thought? This is? hypothyroidism? I have to go back to the doctor.
Dylan Giuliano 10:37
Oh, m kinda.
Scott Benner 10:39
Would you think it was at first?
Dylan Giuliano 10:41
So at first, I kind of thought it was Moto, because of like, maybe a couple months ago. I got moto for a little bit.
Scott Benner 10:52
I thought you were gonna say it a couple months ago. I kissed a whole bunch of girls. Oh,
Unknown Speaker 10:57
God.
Scott Benner 10:59
Is that not what happened? No. How did you get moto then? I don't know. I don't know. I don't either. I don't really know anything about it. I had it once when I was younger. Like when I was like 19. I think I had it. It really sucked. I was like really beat up and it mimicked a lot of how Arden was when her when she didn't have her Synthroid. Like I was really super tired. That's how moto makes you feel. So you kind of like commingled those two ideas from it and thought, well, maybe this is just like, a leftover effect of the Moto.
Dylan Giuliano 11:28
Um, I think so. Yeah.
Scott Benner 11:31
Are you in charge? So how so you know what, let's do something here that might be interesting. How does it work? When you're a little kid, and you feel sick? Do you? Do you try to handle it on your own? Do you just dump it on your parents and hope they figure it out? Like what's, how does that all work?
Dylan Giuliano 11:50
So basically, I try and figure it out first, but usually, like we're all trying to help it out. together. And so we, um, yeah, I technically work with my parents the most.
Scott Benner 12:06
Do they notice that you don't feel well? Or do you tell them?
Dylan Giuliano 12:10
Oh, yeah, I just tell them that. I don't feel good.
Scott Benner 12:13
So if you wouldn't have said anything about your stomach pain, you think they didn't know until you told them?
Dylan Giuliano 12:17
Maybe? Well, I kind of looked pretty pale. So I'm pretty sure they probably could tell
Scott Benner 12:24
from your from your skin color. Yeah, that is the key to everything. When Yeah, when Dylan's when Dylan's pale. Something's wrong.
Unknown Speaker 12:33
Yeah.
Scott Benner 12:35
All right. Dill Pickle. Now let's, um, okay, so because I find that interesting, right? Because as a parent, I know that I try really hard to pay attention to my kids and how they're feeling and how they're acting, right? Because sometimes people will just power through things. You know, they think oh, or you lose track of it. You know, that happens. Sometimes you have a pain. Don't I just burped hold on? Oh, my gosh, I had a little soda this morning, which I never do. And I'm very bubbly now. Excuse me. I'm so sorry. So, sometimes, do you ever burp? Yeah. Do you have one now that you could share with us?
Dylan Giuliano 13:14
On No, no, I usually like never drink soda.
Scott Benner 13:18
Gotcha. I don't either. Diet soda was sitting downstairs, I thought let me be crazy. You know, not not a very crazy person. So it's like, Hey, give me Nazi over here with a diet soda. Anyway, you watch your kids, right? So you know, I do. I don't know what all parents do. I mean, some people might be listening now who are terrible parents and pay no attention to their children whatsoever. I've no idea. But I tried to pay attention. And if you see something happening over and over, you kind of say to your kid like, Hey, how are you feeling? Or I've noticed you're limping. Or why is it you're not using your right hand or you know, whatever it ends up being. And sometimes kids are like, it's fine. It's fine. It's fine. And you have to persevere a little bit and be like, No, I'm still seeing it happen. Like, let me see. And sometimes, they're so sick. They just come to you. And they're like, Oh, my God, I just vomited all over the hallway. Like, do you know what I mean? Like there's, yeah, some there seems to be no. Middle Ground, really. But what I was really interested in was like, how long did you persevere with stomach pain and being tired before you mentioned it? Or did your parents kind of figured out pretty quickly along with you?
Dylan Giuliano 14:24
Um, but maybe, maybe then, like, a day?
Scott Benner 14:29
Yeah. So pretty quickly, they got involved. Yeah. And then do you go right to the doctor, or do they try all the like, regular stuff like, Did your mom say have you gone to the bathroom lately? It was like the first thing she said.
Dylan Giuliano 14:42
Well, actually, um, I've been to the doctor like three, maybe three or four visits.
Unknown Speaker 14:51
And
Dylan Giuliano 14:54
like, yeah, it was pretty crazy.
Scott Benner 14:56
So as always, what happened that you told her you're stomach hurt, and she took you right to the doctor, and then they couldn't find anything. And you had to go back a couple times.
Dylan Giuliano 15:05
But she took me to a regular doctor.
Scott Benner 15:07
Right? Instead of an irregular doctor. Yeah, yeah. So not a diabetes doctor. No, right. I feel like I knew what you meant. But okay, so I had an irregular doctor one time, but that's a different story. So you went to like your regular like pediatrician and you're like, and she's like, hey, Dylan. stomach hurts.
Unknown Speaker 15:27
And um,
Scott Benner 15:28
yeah. Did he like poke you or give you something? Or did he ask if you pooped? Who asked you? If you would have gone to the bathroom? Somebody had to have asked?
Unknown Speaker 15:37
Oh, if I can remember.
Unknown Speaker 15:41
No one asked.
Dylan Giuliano 15:43
I'm trying to remember.
Scott Benner 15:47
I think is the doctor. But the doctor did ask you. Yeah, gotcha. And then you said, Yo, man, here's what's going on. Like it don't come out. Then all of a sudden that comes out crazy. Yeah. How did you say it? Tell me what you said?
Dylan Giuliano 16:04
Well, so basically, I couldn't go to the bathroom for a little bit. So and then I just went to the bathroom. There it goes.
Unknown Speaker 16:14
He said, There it goes. Yeah.
Scott Benner 16:18
That could be the name of your episode. There it goes. Let her fly. Don't pickle. So
Dylan Giuliano 16:26
well, okay. So then what did he do? So actually, it like my, I've actually, it's been holding for a little while. It's like hard to go. So then it probably took like a few days for it to feel better and stuff.
Scott Benner 16:42
So initially, the idea was just like, well, you'll feel better. Like he probably thought you had like a little virus or stomach flu or something. Yeah. Right. So he was just like, oh, that happens to people and you go head home and you'll feel better, but then you didn't feel better. Did you go back to him again, and you go somewhere else?
Dylan Giuliano 16:59
I went somewhere else.
Scott Benner 17:01
Because he wasn't helpful or because your mom started thinking diabetes.
Dylan Giuliano 17:06
Um, well, my mom actually finally talked to the endo, endocrinologist.
Scott Benner 17:11
Ah, and then the endo said, hey, let's do a blood test. Yes, gotcha. So the endo kind of solid for Yeah, signs there because they're very, they're very clear signs of hypothyroidism, untreated, the stomach pain, just like you described is clear. I don't want everybody whose kid tummy hurts not to think they have hypothyroidism. But you know, it's it's pretty. What Dylan's describing what Arden went through is it's severe. And it is, it's noticeable. It's not just a little stomach pain. It's not. And it persists. Well pass, any common sense would tell you that an illness would would last. So. So if people see the signs, you get a simple blood test. And they'll let you know now the hard part and you're just finding out in the beginning is that getting that medication? Correct? is really hard. Like the dose right? Yeah, you going through that right now?
Dylan Giuliano 18:05
I'm kinda Yeah.
Scott Benner 18:08
Have you changed it yet? Or do you think it's working? Are you feeling better?
Dylan Giuliano 18:13
I think I should probably just keep it the same. Just because?
Scott Benner 18:19
Because it's working.
Unknown Speaker 18:20
Yeah. Okay.
Scott Benner 18:22
So can you explain to people after you start taking the Synthroid, and it starts helping you? Like, what's the what's the change from how you felt to how you feel with the medication, I don't think that the blood glucose meter you have should just be the one that somebody gave to you. I think you should have the best, the most accurate, the easiest to use the most pleasing to your eye, the one that fits in your hand, like what fits well, on your hand, you know, fits well in your hand like something if it's holding your hand, it has a beautiful bright light for when you're testing at night, and test trips that allow you to go back to the blood drop a second time, if you don't get quite enough the first time. That saves a lot of test trips, and a lot of hassle. I believe that you deserve a meter that can chart your blood sugar tests in an app on your iPhone or Android phone to give you the data that you need later, to see how things have been going, huh, don't you feel like you deserve that as well. Of course you do. Now, like a dream. It will come true when you go to Contour Next one.com. That's where you're going to find out about the meter. That's where you're going to find out. If you're eligible for a free meter. There's a little button at the top of the page, give it a little click, you might be one of the lucky ones. But if you're not, it's super simple to tell your doctor I'd like to change my blood glucose meter. I've been using this old meter forever. I don't even know if it's accurate. I haven't even ever checked Have you ever looked online to see if you meters one of the really accurate ones or one of the ones where people are like, Well, you know, it's a blood glucose meter? Have you? I bet you haven't. But you know which one of those meters is right at the top of that list. I know you know that I'm gonna say the Contour. Next One. So it's worth a shot. blood glucose meter is an absolutely integral part of your life with type one diabetes, and you shouldn't be using an old busted up one, you just shouldn't Contour Next one.com go there today, there are links in the show notes of this podcast player, and at Juicebox podcast.com. If you can't remember, Contour, Next One. But I mean, the name of the meter, you want the meter? The websites the same? feels like you're gonna be able to remember. Go check it out, get it done. Don't wait. When you think about people helping people, who do you think about besides Dylan today? Who's doing a really wonderful job of sharing his life with Type One Diabetes? What do you think when you think of an organization that's out there? Doing things for people with type one diabetes, do you think of touched by type one? Well, if you don't, you should, you should check out touched by type one.org. They're also on Facebook, and Instagram. And they're doing amazing things for people with type one diabetes every day, not once a week, or six times a month, every single hour of every single day. They're helping people with type one. And they have an overarching goal of finding a cure. So they even donate money to that. This seems like something you'd like to know about, I imagine. And Firstly, all you have to do is make with the typing. Touched by type one.org. There's about 20 seconds of music left, should I cut it off? Or would you like to just bop your head and maybe dance a little while you're vacuuming or whatever you're doing? You know what things have been stressful lately? Why don't we dance?
Dylan Giuliano 22:37
I was actually not as tired pooping regular basically.
Scott Benner 22:42
You weren't as tired? No. Right? And then your your kind of your valves and everything went back to kind of normal using the bathroom the way you expect. Yeah, all of a sudden, all that stuff. So how quickly did it happen after you start taking the medicine?
Dylan Giuliano 22:58
If I could, maybe.
Scott Benner 23:03
Maybe week, a couple weeks, and you felt better? Yeah. That's cool. That's excellent. Any other changes that you have your parents noticed? Like, were you in a bad mood? Or like anything else happening that the medications changed? Or have you not noticed anything else?
Dylan Giuliano 23:18
Yeah, I was kind of like in a bad mood and stuff.
Scott Benner 23:21
Yeah. The people whose thyroids are off can be short tempered, I guess is the way to put it. Yeah. Right. And, and that's another thing you could be looking for.
Dylan Giuliano 23:33
Yeah, I was actually kind of depressed and stuff like that.
Scott Benner 23:36
Yep. I'm glad you're feeling better. That's really cool. All right. So all right, one thing down. And we'll get to the diabetes in a second. But you mentioned something else that is incredibly interesting. Because it's, it's hard to get a diagnosis for. But how are you? You know, how are you diagnosed with fibromyalgia? First of all, tell me a little bit about it. Like what what does that how does it make you feel and how does it impact your life?
Dylan Giuliano 24:02
Like so like, my elbows and arms and stuff for just like affecting so my mom was just like, wait, why is your elbows like so red or something? And so she just took me in. I just had fibromyalgia. So they saw something on your skin. Like, basically, there's like pain all over myself.
Scott Benner 24:24
Okay, but you saw something visibly on your skin like redness? Oh, my elbows. Yeah. Okay. And that's what got and did you have joint pain and that kind of stuff going on? Yeah. Is it in your muscles or in your joints? I know that's a weird thing. But like your muscles hurt. Do you feel weak? Or do you have like pain in your knees and hips and things like that?
Unknown Speaker 24:47
both
Scott Benner 24:48
areas that it happens like that. So you just have sort of like an all over body pain? Yeah, does it cause muscle pain or muscle stiffness to your muscles get really tight like You worked out too much. And they're like, super like in a knot, or do they just hurt in general?
Dylan Giuliano 25:06
Um, they
Unknown Speaker 25:10
kind of both actually
Scott Benner 25:12
do. How do you help that? Like, do you ask people to give you like massages? Or like, how does that work?
Dylan Giuliano 25:19
I just
add on stuff. And just hopefully that goes away and I stretch.
Unknown Speaker 25:27
Stretching.
Dylan Giuliano 25:29
Yeah, stretch and I take Advil.
Scott Benner 25:32
Is that what the doctor asked you to do? Or do you just do that? Because the pain is bad. And you we kind of can't? Do you want to do something?
Dylan Giuliano 25:38
Yeah, I probably because my, um, because I just do it because I feel like, worse and stuff like that. So I usually just take Advil and stretch, and my pain was very bad.
Scott Benner 25:56
Yeah, what's the impact of the pain? That's what I was gonna ask you like, is it does it keep you in bed? does it keep you from doing things you want to do? But how does it affect you?
Dylan Giuliano 26:06
Um, so basically,
Unknown Speaker 26:10
huh?
Dylan Giuliano 26:14
I can't really run around and stuff. Okay.
And Mmm
Scott Benner 26:23
hmm. What happens if you run around?
Dylan Giuliano 26:26
Like my joints and stuff to start to hurt and stuff like that? And I just feel run down.
Scott Benner 26:34
What's the dike? Like? How did they diagnose? Fibromyalgia? Is that a test they give you? Or is it just because? Is it one of those things that it doesn't have a diagnosis, but it's nothing else. So they call it that or how do they do that?
Dylan Giuliano 26:48
I actually don't know. I just saw a rheumatologist.
Scott Benner 26:52
Okay. And that's and so is there's no medication beyond Advil. I don't know. But you're not taking anything is what I'm saying. No. Okay. So it's not like they were like, oh, here's the Fibromyalgia medication like, yeah, diabetes, no, like, Hey, you have diabetes. Here's insulin. They weren't like you have fibromyalgia. Here's this. It wasn't like, Oh, right. So stretch. Is diet impactful. Do you have you changed your diet?
Unknown Speaker 27:20
Yes. How?
Dylan Giuliano 27:23
I'm just eat a little healthier. And then it just started helping thing helping my joints and stuff.
Scott Benner 27:32
No kidding. So what are some foods that you are eating that you're not eating anymore?
Dylan Giuliano 27:36
So I'm actually back then I used to eat some wheat and stuff. But now I'm just good friends. So it helps my joints and stuff. Cool. That's cool. So eating gluten free is helping? Yes. A lot.
Scott Benner 27:50
And are you do you have celiac or No,
Dylan Giuliano 27:53
No,
Scott Benner 27:54
I don't. So it's not for reasons of celiac. It's for reasons of like inflammation and things like that. Yes.
Unknown Speaker 27:59
Yeah. Gotcha.
Scott Benner 28:03
on a day to day basis, is it? Like I know that some people say there's flare ups? Like there's some days that are worse than others? And there's hard to figure out why sometimes, but are you in the middle of a good day or a bad day right now?
Dylan Giuliano 28:17
Right now? I'm in a good
Scott Benner 28:20
pool. And it now if you just got up and went outside and ran a marathon, would it start hurting right away? Or on a good day? Does it not bother you when that happens?
Dylan Giuliano 28:30
Um, it wouldn't really hurt me
Scott Benner 28:33
on this day. Oh, no kidding. But then when it happens, it happens and then running would be bothersome. Yeah. Wow. That sucks, man.
Dylan Giuliano 28:41
But usually when I get sick, it gets like worse. So if
Scott Benner 28:45
you get a cold like a like what they call regular people sick you get to get a cold or something like that. Then that kind of. Yeah, it's worse as well. Okay. Yeah. Any other brothers or sisters?
Dylan Giuliano 28:57
Well, I actually have one brother. He's an older brother.
He is 13
Scott Benner 29:03
Nice. Is he Karl the cucumber? What? No, pickles are cucumbers that are pickled. So I don't know if his name was Carl and you guys call? Nevermind. Dylan? If you're not gonna laugh at my dumb joke. I don't know what to do. It's not is it Chris the cucumber? Like what's his the you don't have to tell me his name. Is he named after any kind of sides? coleslaw? No big potato salad. No, what's his neck? Does he have a nickname?
Dylan Giuliano 29:32
Yeah, so basically, his real name is Anthony. But we like to call my mom and stuff like to call it man. Just because I don't know. Why is he tiny? No. Is he a superhero?
Scott Benner 29:48
I don't know. I thought you're gonna say was Tony the Tiger. I would have been a great nickname for a kid named Anthony.
Dylan Giuliano 29:54
Probably. Probably would.
Scott Benner 29:56
Yeah, if you put me in charge of his nickname. He'd be Tony the Tiger or I'd probably just On boogers, because I'd be lazy about it and want something easy that I can remember. Do you think my daughter enjoys being called boogers?
Unknown Speaker 30:09
Ah,
Scott Benner 30:10
probably not. Oh, I 100% think you're right about that, by the way, complained about it openly. But she does make a weird face at me. When I do it. I actually have a test or something right now I'm texting her get loop green. Her loop is not looping. Do you? What do you how do you manage your diabetes? What do you use?
Dylan Giuliano 30:33
I use and pan and a dexcom
Scott Benner 30:37
Dexcom in Penn. Nice. They're a sponsor of the show.
Unknown Speaker 30:43
You know that?
Dylan Giuliano 30:44
Yeah, I've actually heard it from a couple episodes ago.
Scott Benner 30:47
Thank you. So Dylan, um, no insulin pump. That's cool. Arden's looping. So I'm trying to get out of like right now that there's so there's no connection between her. Her pump and her Dexcom and her phone aren't connected right now. So because of that her the algorithms going back to whatever her standardized bazel rate is. And it's not adjusting her bazel up and down, which has been fine for the last hour or so I've just let it go because it's working. But now all of a sudden, her blood sugar's trying to drift down. And I need the loop to cut her bazel off, but it's not connected. So it's not doing it. Oh, so I've sent her a text and asked her to do that. And whether or not she does that is anybody's guess. But what I need her to do, basically is to turn Bluetooth off and turn it back on. And then it should connect again. So we'll see. So I might have to texture once or twice while we're talking because it seems like she's in a part of the building where she's not getting good coverage, because my texts are going through slowly. So do you are you homeschooled? I actually yeah, I'm homeschooled. And have you been always? Or is that something that started after the diabetes? Or what are you guys doing?
Dylan Giuliano 32:11
It's actually started after the diabetes. Because like I used to get always sick and stuff like that. Like, I probably would get sick like every week. If I can guess it'd be like every week
Scott Benner 32:27
diabetes related or something else?
Dylan Giuliano 32:30
I don't know. Basically both.
Scott Benner 32:33
Do you like it low blood sugars? And it was hard to deal with at school? Yeah. And how do you enjoy? Who teaches you at home? like where do you get your lessons from?
Dylan Giuliano 32:43
Um, well, I get my lessons from my teachers. So, but Well, actually I do k 12.
Scott Benner 32:53
I don't understand. So wait, the school sends you lessons and like your mom and dad help you with them? Or how does that work?
Dylan Giuliano 33:00
So, um, I'm actually in public school. online school. Sorry.
Scott Benner 33:06
Oh, online public school at home? Yeah. Nice. That's cool. You know, you could use Instagram to learn if you needed to. You could just like, between, let me just say this, between cardi B and Drake. I think there's a lot of wisdom in the world. And I think you'd be able to get it from them. I don't. Do you believe in that what I just said or do you think I'm being sarcastic and joking with you always sarcastic? I am being sarcastic. But there there is a lot of good information in the world. It none of it comes from cardi B. I you know, I'm lying. She says some stuff that is hilarious. I sometimes she's talking I'm like that woman is a genius. And, and yet her messages is marred by some some of her tone. Nevertheless, you so you have a so you have an online system. That's through the public school system, but you do it from home. And so when you get up in the morning, like it's super early where you are right now, right?
Dylan Giuliano 34:04
Yeah. 657 right now,
Scott Benner 34:06
like I tried. I was like Dylan, you can do this later. And you're like, Nah, I'm too excited. Let's do it now. And I'm like, that's cool. So you're really excited to be on this podcast, aren't you?
Dylan Giuliano 34:15
Yes. Like I couldn't sleep last night.
Unknown Speaker 34:19
Seriously?
Dylan Giuliano 34:20
Yeah. That's how excited I was. Why?
Scott Benner 34:23
What did you think was like, what was your excitement coming from?
Dylan Giuliano 34:27
I don't know. It's just when I was in your livestream a couple of days ago. So like, I was just like, Yes, I just remembered that was by Juicebox Podcast, so I just got super excited and I couldn't sleep.
Scott Benner 34:40
Is it my fault? You didn't sleep? No. He shorted it sounds like as I went online, you saw I got excited and didn't sleep that I feel like I did this to you know, Oh, is it gonna make the rest of your day like sleepy?
Unknown Speaker 34:54
No, no.
Scott Benner 34:55
So what are you going to study today
Dylan Giuliano 34:58
um, No, actually,
Scott Benner 35:02
who decides? Is that just you? You log on and it's like, hey, Dylan, today you're doing this.
Dylan Giuliano 35:08
Oh, technically. So I have live classes and lessons basically. So like, my live classes are Mac era science and history.
Scott Benner 35:20
So Dylan, let me make sure I understand you sit in front of a computer where you see video of a classroom happening. Kinda like can you interact with it?
Dylan Giuliano 35:30
Sure. So it's like,
these teachers are actually talking to you on mics, and they're like, teaching you some stuff. And it's pretty cool. Actually.
Scott Benner 35:43
It's insane. I had to get up and get on a bus. And then a Dylan, I'm gonna tell you right now.
Dylan Giuliano 35:50
So basically, it's actually after PowerPoint. It's PowerPoint. Okay.
Scott Benner 35:54
Okay. So like they did. It's a presentation about that. And if you have a question, you can be like, yo, just now on number five. I don't understand. Stop. Go back and explain it. Yeah. Okay. Yeah. You have interaction with somebody? Yeah, I don't do you want to hear about my walk to the bus stop. out of my house right? down this long Hill. Then I got to make a left. Then I walk a full block. Right. Then I make a right, a right. Make a walk another full block. Then I make a left walk three blocks up over a big hill. That was my bus stop. It took me 20 minutes to get to my bus stop every morning. Wow, one cared about children in the 80s Do you understand? No one. No one cared. They were just like, they were like, Look, if that one dies, it dies, whatever. You know, like there's more kids. Nobody protected children the way they do now. And then it would be raining. And you know, and you would just go out and just be like, Oh, I'm gonna get soaked going to the bus stop. Don't be so all day long. And you know who will care Dolan? Who no one I just explained it to you. No one cared. Okay, so you get to school your shoes were soaked. Your jeans were soaked. What would you do? If you got to school and you were stuck? You would go tell somebody? Hey, look, I'm all wet. I gotta call my mom. Right? Yeah. That's not what happened in the 80s. Dylan in the 80s. They'd go, no one cares. Go back and sit down and don't get the floor wet. And you'd be like, how am I gonna get the floor wet? I'm dripping like a wet towel. Right? No one. Yeah. Different World. Different World. Dylan. I'm telling you right now. You live in a golden age of being a kid. Did it stand. There's you're at home right now because you don't feel well. And you get to go to school online. If I didn't feel well, when I was little. You know what my dad said? What? Nothing because he had left for work hours before school started. And he didn't not to put too fine a point on it. What done? What did my dad do?
Dylan Giuliano 37:51
did nothing. Yeah,
Scott Benner 37:52
right. He didn't care. He didn't give it. He was like, yeah, that kid will grow up. It'll get a job. Whatever. You don't I mean, like, right. Your mom and dad care about you. Look at all the effort Your parents are putting into helping you feel better. To make you a keep you educated. It's really cool. I really am really impressed that that with all these I mean, because you're having a lot of dealing. Can we curse you and I together just a little curse? Do you cry? Sure. I'm fine. You do? Yeah. I'll bleep this out later. But you're going through a lot of you don't I mean, like you got diabetes sucks. This fiber mile just sounds like a headache. And then you and then the hypothyroidism I know from Arden is not fun. And, and and you're dealing with all this stuff. You got a great attitude. And on top of that you're trying to help other people. Yeah, dude, why are you such a nice person? I don't know who just happens natural. Yeah, yeah. Good for you. That's nice. I'm a nice person to people don't think it. My wife, people, my wife always be like, isn't that woman nice? I'm like, I'm nice. You never hear anybody say it. And she's like, it's because you're saying it. I'm like, man, I don't think that's why I think people don't think I'm nice, but I am. But you're really you're superduper double nice. So to see. You're welcome. That's how I know you're nice. You thanked me for saying something nice about you. I would never do that. If you said something nice about me. I tried.
Unknown Speaker 39:18
I'm here.
Scott Benner 39:20
You're a nice guy. I'll see now I say thank you because I feel pressure. But in the past, I would just say of course I am done. You're 100% right. You know, I'm just kidding. I wouldn't say that. It is a it is a very good thing you're doing trying to share your life and I want to talk about that a little bit as much as you're comfortable. So you have a Facebook page. You have like the YouTube you're a kid you probably probably have everything right? Like you have different like pathways to people. Yeah, I need to share your life with Type One Diabetes, right? And talking to people about what's going on and everything and first of all, are you enjoying doing that?
Dylan Giuliano 39:56
Yes. I very enjoyed it.
Scott Benner 39:58
What about it? Is, like rewarding.
Dylan Giuliano 40:02
I just like to educate people and tell people about like, type one and stuff.
Scott Benner 40:08
That's very nice of you. Now, we're gonna curse again and again, it'll get bleeped out. Okay, some of
Unknown Speaker 40:16
you online.
Dylan Giuliano 40:17
Yes, like I got bullied a lot of times.
Scott Benner 40:21
And is this from people like that you can actually see like, you know who they are like, are they adults? Are they kids?
Dylan Giuliano 40:28
I honestly don't know. I can't tell. No.
Scott Benner 40:32
Okay, so So are they, you can't tell if there's somebody who has diabetes who's like you're doing this wrong, like, what do they What have you what has been said to you in the past? I hope this isn't hard to talk about, but what is it what has been said to you?
Dylan Giuliano 40:44
So basically, actually, I think they're most mostly adult. So like, many people like this, there's just one lady who said, who told me, I don't know how to, like, take care of myself. And like, like, when I was in the hospital, they said, Oh, I thought you were low carb. And you should probably stay healthy again, and stuff like that.
Scott Benner 41:07
So someone just kind of like came at you when you ended up until you're trying to share with somebody, hey, I'm in the hospital. Now this is going on. And instead of them saying, Oh, I hope you feel better. Someone actually said, Oh, I thought you were low carb. This shouldn't be happening to you, or you should get back to that or something like that. So that seems like a good time to again, remind people how old you are. Don't I'm 12? Yeah, it's a good time to tell a 12 year old they're making a mistake, because you're completely in control of your life. Right, Dylan making all your own decisions. Your parents have nothing to do with it. No, of course not. You're a kid. Right? Right. Like you. You just you're rolling along doing your best, everyone's doing their best and you're trying to share. Now, let's discuss what kind of a monster would say something like that to a 12 year old? What did you imagine in your mind when you looked at it? You know what? No, no. What was your reaction? When that was said to you? How did that make you feel?
Dylan Giuliano 41:56
I just felt very sad. Because an emotional because, like, I've never had that happen to me before. Like, I was probably like my first time that ever happened. So I just got very sad and stuff. No,
Scott Benner 42:09
no, I'm sorry for you seriously. And I am going to, I'm going to try my best right here to give you some guidance that I think will help you because if you're going to keep sharing with people online, like this are some things you're going to have to understand. And I have a unique perspective on this. You have come to the right place, Dylan, this is your online class today on dealing with people who feel like they have an input into what you're doing. Okay. Okay. So you're in an interesting situation. You are sharing stuff online. So you are putting yourself out there, you're opening yourself up to anyone's interpretations, desires to speak to you, right? So yeah, you've taken that risk. And so that's something you've done on your own, I'm assuming with your parents, I assuming your parents understand what you're doing online, and they're okay with it. Right?
Unknown Speaker 42:59
Yeah. Yeah.
Scott Benner 43:00
Right. Okay. So, you've done that. That's your decision. You've put yourself out there. What you have to realize from there is that not everyone is going to jive with what you're doing. Right? So you're going to talk to some people who you're going to hit right in the heart and they're going to be like, I love this Dylan kid. You know, like, I love what he's saying. I love what he's trying to share. I'm with this. Those people are going to be you know, for the lack of a better word fans of what you're doing. Now, there are going to be some people who don't agree with you. Now, when those people are mentally healthy, they just won't pay attention to you. Right? Like, like, for instance. Do you like baseball? Yeah. Okay. Do you like football? Yes. Do you like soccer? Yes. Like, ah, do you like ice hockey? Huh? Do you like ice hockey?
Dylan Giuliano 43:52
I'm not really big fan of ice hockey.
Scott Benner 43:54
Okay, so do you watch baseball games on television? Yeah. Do you watch ice hockey games on television? Yeah, you do or you don't? kinda guy but you don't love it? No. Okay. So if I put a baseball game up at a hockey game up, what would you watch? Probably a baseball game. Okay. If you decided to watch the baseball game instead of the hockey game, would you then send an email to the hockey game and tell them you suck? I'm not watching you. I'm watching baseball instead. No, ah, why would you not do that?
Dylan Giuliano 44:25
Because it's just disrespectful. I mean, and unnecessary.
Scott Benner 44:28
And Dylan, let me say insane. It's absolutely insane. Why would you I don't understand why someone would take the time to let someone know I don't watch your thing. I don't get I don't get that. I don't understand why someone wouldn't see you online and if they disagreed with you or didn't like the way you presented yourself or whatever, why they wouldn't just think Hmm, well, this is the thing I won't follow anymore. And I'll unfollow this. Why is it that they need to Do they feel the need to jump in? And give their opinion?
Dylan Giuliano 45:05
I don't know, like many people, just like, make fun of me because of my videos and like on YouTube and Instagram and Facebook and stuff like that for all for basically.
Scott Benner 45:17
So that's happening, what keeps you doing it? Why do you keep doing it?
Dylan Giuliano 45:21
Well, I can just push away the bullies and just stay positive and try my best to ignore them. And I just block them. And just keep going.
Scott Benner 45:34
And because there are probably plenty of people who are enjoying what you're doing, and they're getting something out of it, right? Yes. Excellent. That's right. Like
Dylan Giuliano 45:41
many people are just like, Oh, my gosh, you're thanking me so much. You're helping me a lot and stuff like that.
Scott Benner 45:49
So there are people who relate to you. And those people are being genuinely helped through just the community really just feeling like they're not alone, you know. And that, did you hear the episode with Tommy?
Unknown Speaker 46:03
Yes. And Tommy's
Scott Benner 46:04
more your age. Right? Did you enjoy listening to Tommy?
Unknown Speaker 46:07
Yeah. Cool.
Scott Benner 46:09
Now, do you think that a 55 year old guy would enjoy listening to Tommy as much as you did? Probably. Yeah. I think so too. I think people's stories are universal. And I think that if you really stop and listen, that you'll hear something, and something that's being said, that's valuable to you. And that's very cool. And I think that those people could find that with you, too, if they wanted to. Instead, they want to be mean, I guess, and and I don't know why that would be I also, you sometimes also run into people who are like, Hey, here's what you should be doing. Here's what you're doing. But this is what you should be doing. Have you had Yeah. Have you had that one yet? Yeah. Yeah. So they think you have some sort of a spotlight on you. People are paying attention to you. And they want you to be saying something different than what you're saying. Yeah, yeah. You know, what those people should do? What What do you think they should
Dylan Giuliano 47:07
just leave? Don't come back or something? Yeah,
Scott Benner 47:12
they should either start their own thing and say what they want to say and see if people will follow them. Where they should shut up. Because, right, because what is the point you only have your perspective to share? That's Oh, yeah, that's all you have. I can't, I can't come on this podcast and be somebody other than who I am. Mm hmm. So I will share with you. Because I know this has been hard for you. And I know you like the podcast, that I get emails once in a while and notes from people who are like, you're not doing a good job with the podcast. You should Yeah, you should be doing it like this. You did you made this decision and not that decision. I'll tell you one thing that people don't know, don't is that sometimes guests come on the show. And they're nervous. And they don't speak the way that makes it interesting to listen to, sometimes there's slower, or they kind of, you know, they don't maybe have command of their thoughts the way they thought they were going to when they come on. And when that happens. I jump in and talk more. Okay. And I think that that's noticeable for most people. Like I think when people listen, you go into Scott talked a little more this week, the news last week, probably a reason for that. But every once in a while, you'll get a note from somebody who's like you talked over that person and didn't let them speak. And what I want to say to them is Listen, I was doing what I thought was best there. If you don't agree. You're welcome to buy a computer and software and get hosting and a microphone and a processor and make your own podcast and edit it and put it up and find people to listen to it and see if you can do something that you would be interested in. Because, wow. Right? Because that's all this podcast is honestly, it's something that I would be interested in listening to. If I was looking for a podcast about diabetes, I am not here to make bland content that everyone's going to like because there are people who do that. And those podcasts aren't very popular for a reason. So I like you being unique. I like you doing your thing. And the people who love it. Love it and the people who don't. That's okay, too. Yeah. Good for you. How do you get so strong in this scenario? Like seriously? I, I am. I've had practice. Like I wrote a book A long time ago and some people really liked it and some people didn't like it. And that was my first real practice and being like, wow, not everybody's gonna like everything. I say, Okay, I have to be okay with that. But you're 12 you're living with diabetes, fibromyalgia, hypothyroidism. And on top of that, some people come along and they're they're not nice to Like how did you find the like, where do you find the goodness inside of you to like, just deal with it so well?
Unknown Speaker 50:05
I don't know.
Scott Benner 50:08
You're supposed to say good parenting there. That was for your mom I set you up there don't so you know my parents have raised me really well. Good deal and how did you find the kindness inside you to deal with that so well,
Unknown Speaker 50:19
I
Scott Benner 50:22
actually don't know Dylan take three. When I asked you the question. You're gonna say it's great parenting. My mom and dad are beautiful people ready? 123 Where do you find the goodness inside of you to do that? So well.
Dylan Giuliano 50:31
Great parents. I agree
Scott Benner 50:33
with you man. Good parenting is always the key. You know, amen. Just really people who have your best at heart and they're looking forward to you're really filling you full of goodness in life. So you can give it back out again. That was for your mom and because she's gonna listen to this, okay.
Unknown Speaker 50:47
Okay,
Scott Benner 50:47
kids never understand. Every once in a while, man, you got throw a bone to your mom. You know what I mean? Like just the text message during the day. Hey, Mom was thinking about you. Hope you're having a good day. Boom. Perfect. I'm telling you don't know how to do it. You got to do it like that. Even just your role, Pastor. Is she in the house with you now? Yeah. Let me tell you something right now, though. At some point today, not as soon as you get off our show. Now. Out of nowhere, you make eye contact with your mom and you go, Hey, mom, and she looks over at me. She goes, Hey, Dell. And here's what you said. I just want you to know I love you. And then she goes, Oh, thanks, buddy. Come give me a hug. And she'd be like, Yeah, come over, give her a nice hug. And you move away made her day.
Unknown Speaker 51:28
Right? Yeah.
Scott Benner 51:30
Now you do that today. And like months from now, she's gonna hear this podcast, and she's gonna be like, that's why that kid hugged me that day. You know, right, right. Yeah. But it's, but it's seriously a nice thing to be kind to other people. All right. I joke. I joke around a lot on this podcast, I'm sarcastic. And I do that for a number of different reasons. It's a pretty purposeful when I'm doing it. And and yet I am, I have a real kindness inside of me that that doesn't reflect in sarcasm. I really, I want just like you do to share something with somebody that might help them. And so yeah, have you ever shared something with somebody that you've seen reflected back? Like, they've come to you and said, You've helped me and how does that make you feel?
Dylan Giuliano 52:16
I think it feels like, great. When you
Scott Benner 52:20
get that kind of response back and you get that great feeling is it like, I'm happy to have helped someone, or, or I feel badly and I just need to feel a little better for a second. And it's nice that I was able to do something that this person liked. And I get to feel good about myself for that. Like is it all of that none of it, some of it?
Dylan Giuliano 52:41
All of it. Because when I actually grow up, I'm actually going to be an endocrinologist
Scott Benner 52:48
for type one, so that's why I'm kind of getting the hang of doing my page and stuff. So you're trying to teach yourself how to talk to people with diabetes, so that one day you can become a doctor and help people with their diabetes. Yeah, that's pretty thoughtful. I didn't plan ahead like that in life. And that's like, I have a podcast, but no, sorry. But, but so that really occurred to you like I'm gonna like, I'm gonna learn how to talk to people better. Now, where did that come from? Do you not like the way you're spoken to about your diabetes? Or do you wish it was different?
Dylan Giuliano 53:27
i? I don't know.
Scott Benner 53:30
You don't? Do you have any feelings? Like when you're talking to the doctor that you're like, I wish this guy understood better? Or I like the way they're talking to me. Do you ever leave? Feeling like you wish your appointments would go differently for you? Or do you not really think about it that way?
Dylan Giuliano 53:45
My doctor is great, though.
Scott Benner 53:47
Yeah, really cool.
Unknown Speaker 53:49
Yeah, nice.
Scott Benner 53:50
They let you steal rubber gloves and blow them up like balloons. That's what that's what we do when we're waiting too long, or that I play. Like volleyball with a rubber glove, we blow it up. And then she sits up on the examining table. They sit in the chair and we just bounce it back and forth to each other. It's how we pass the time waiting for the doctor to come in. But it's very cool that you have a doctor that you really like. Yeah, yes, a lot of people don't get that. And so it's nice that you have it. So what's your favorite thing in school? Like what's the what's the thing that you do online that you've enjoyed the most? Like, what are you the best at is it math or?
Dylan Giuliano 54:28
i? I like science and math.
Scott Benner 54:32
Yeah. Yeah, not so much the writing and the history.
Dylan Giuliano 54:37
Not really.
Scott Benner 54:38
Not right. You don't want to know what the Bolsheviks are doing? Or we're doing hundreds and hundred. No, you're not worried about that. So much. I watched Arden's writing a history paper right now on the Cold War, and she doesn't seem thrilled. You have a couple of years before you're gonna get to something like that. But yeah, she doesn't seem to be thrilled at all. Um, have we ever met You and I,
Dylan Giuliano 55:01
I think yeah, I think we have I mean, summit. You were there, right? I feel like
Scott Benner 55:07
you weren't like it's the type one nation summit. No. Were you listening to the podcast back then when you met me? Or is that where you figured out to listen?
Dylan Giuliano 55:14
I kinda.
Scott Benner 55:16
That's about when you started listening. Yeah. Let's What do you like about the podcast?
Dylan Giuliano 55:22
I just like to hear people with type one. Tell about their feelings and stuff. Nice. Because I went to my agency went to 7.8 6.9.
Scott Benner 55:37
Wow, from listening to the podcast. Yeah. No kidding. You should probably send me some money in the mail or something. I'm kidding. I'm 100% joking about that. I although if one day, there's a diabetic, they'll pick a T shirt. Maybe I would like to get one of those. But we'll see if things blow up enough. You know, they mean, by the way, if you become an endo, Monday, how are we going to keep the pickle for it? Same going for that?
Dylan Giuliano 56:05
I don't know. I'll probably just keep it going and stuff like that.
Scott Benner 56:11
I have a question. And I'm being serious. What do you like pickles? Yes, you do that? Do you prefer a dill like a spear? Or a bread and butter? Kind of like a sandwich style pickle? Or what's your favorite pickle?
Dylan Giuliano 56:24
I kind of like dill. Yeah. Like, don't people
Scott Benner 56:28
eat him right out of the jar? Do you want them along the side of a sandwich or on a sandwich we're looking for?
Dylan Giuliano 56:34
I don't know. I'm kind of like both.
Scott Benner 56:37
You anyway, you'll do it? Yeah, there's no way that you wouldn't be like, Hey, have you ever passed on a pickle? Have you ever looked at and said, I don't like a bread and butter pickle? No, thank you. No, no, there's no, no one that you've ever seen that you haven't? Like? No, I'm going to share something with you now. I don't think I've ever had a pickle. What I mean, I'm sure I've been into one into a cheeseburger once or twice that I didn't realize was there. But I would recoil immediately and get rid of it. Wow. Yeah. I don't know. I'm not a pickle person. But I defend your right to love pickles. By the way. Very cool. don't I? If we not covered anything you were hoping we talked about? Like, are you sitting there right now going? How come? He hasn't asked me about this?
Unknown Speaker 57:26
Huh? No, no.
Scott Benner 57:28
Well, if people don't like this episode, and they send me an email and say I did a bad job. What would you say?
Unknown Speaker 57:38
You just blocked them, wouldn't you? You'd be like,
Unknown Speaker 57:41
yeah, call block.
Unknown Speaker 57:41
Do
Scott Benner 57:45
Yeah. So is it? How does it if you block I've never blocked somebody before. But if you did that, does it make you feel bad that they didn't get something out of it? Or do you feel like goodbye soccer? Like, which? How do you make you feel?
Dylan Giuliano 58:01
Like I kind of feel sad? Because like, they were kind of like rude. and stuff. I just had to block them.
Scott Benner 58:13
Do you think there'd be a way for somebody to say something to you? That wouldn't have been rude, where they could be like, hey, Dylan, you know, I really, I love what you're doing here. But one time you said this. And now you seem to be saying something different? And it's conflicting? And I don't understand or like, like, would you have a conversation with somebody if they were just confused?
Unknown Speaker 58:32
Yeah, yeah,
Scott Benner 58:34
I do that sometimes I send emails back sometimes I'm like, Look, I feel like you might be just don't understand what's going on here completely. And, you know, I can't really explain it to you. But if you can just accept that, you know, there was a reason that that happened. And that that kind of thing. It's a very weird thing to have a one way conversation with the person because they'll know the thing you might not realize that I'm starting to realize more and more from the podcast is that people listening to you or reading you feel like they know you a little bit. And then when you do something that they don't expect, it feels wrong to them. But what I would say is you're just doing you and that's why they were looking in the first place. So yeah,
Dylan Giuliano 59:19
I just feel like they aren't they they're rude. And I just tried to chalk talk to them.
Scott Benner 59:27
Yeah, good for you. And then if they don't listen, come block. Done. Yeah, smack them in the face with a pickle. Yeah. If you were going to if you were going to throw a pickle at somebody, what kind of pickle would be the best pickle to throw? I have my answer. I don't know. I think Paul. Good. Good. What do you got? Which one?
Dylan Giuliano 59:51
Probably does a Sally's like hot pickles. Oh,
Scott Benner 59:56
it's it's you'd fling you'd fling a spicy pickle at somebody. If you were gonna do Yeah, see now I was thinking immediately, you know, those little like girkin like the little tiny like solid, like maybe into too long and thankfully, I feel like I get your, like pointer finger behind it and really kind of like with a madam. You know, like boom. And then like because and they wouldn't hurt anybody but they hit they'd be like a little like, like a little thud like on their forehead. You know what I mean? Like, I think that would be fun.
Unknown Speaker 1:00:22
Yeah, yeah, yeah.
Scott Benner 1:00:25
Okay, throw in pickles is definitely bites it does sound like fun to me throw a pickle at somebody.
Unknown Speaker 1:00:34
It does,
Scott Benner 1:00:36
although the little sandwich style ones that are kind of cut in slices. Like now I'm like, you can kind of frisbee them. You know what I mean? Like, like, maybe because they're wet. They'd like sit and stick like now I'm imagining just like, sticking pickles to someone's like forehead. That's all I don't I hope I haven't let you down. I don't know. I know. You want to come on so badly. And I it's hard to know what to talk about sometimes. And I did. I did my best to to make this fun for you. Did you have fun?
Dylan Giuliano 1:01:05
Yes, I had a ton of fun. I just appreciate you putting me on this podcast. Thank you so much.
Scott Benner 1:01:11
It's my pleasure. What would you want? I guess if there's one thing about diabetes that you wish people knew what what would it be? How to handle it? You just wish they knew better? How to help themselves? Yeah. Do you struggle to help yourself? Sometimes? Yeah. Yeah. And and so any information coming in from the outside? is valuable? You think? Yeah, yeah. Cuz then you can take it and sort of like, mold it to yourself and and take some ideas that work for you and leave others behind that you don't like and and find a process that works for you.
Dylan Giuliano 1:01:49
Yeah, out awesome. And people would probably be much nicer and stuff.
Scott Benner 1:01:55
You think if they're okay, hold on a second. So you think that Do you believe that some people are struggling with their diabetes, and therefore maybe they lash out in different ways? Yeah, yeah. So you're looking for people to have a more harmonious life? All over?
Unknown Speaker 1:02:15
Yeah, yeah.
Unknown Speaker 1:02:16
Okay.
Scott Benner 1:02:18
I understand. Dylan. What do you do for your mom today?
Dylan Giuliano 1:02:25
Um, listen the eyes. Tell her I love you and give her a hug right out of
Scott Benner 1:02:31
nowhere. Oh, Dylan. Hold on. People are calling. Let me see what's going on here. This is like a bad call, like, you know, like, they try to sell you like solar panels or something like that. Yeah. So it's what I'm getting right now. I didn't mean to let that interrupt you. I'm so sorry. And do it out of nowhere. hours from now, like, hours from now. Just boom, get a make her day. She's gonna like she'll get in bed tonight. And she'll be like, she'll say to your dad, she'll go. You know, at some point today, Dylan just came up to me and said he loved me and gave me a hug. It was so nice. She's gonna be all like Wi Fi and everything and feeling really good about it. Right? And then, like, essential, listen to this later and should be like that little kid. He didn't mean that. But you would meet it if you said it, right.
Unknown Speaker 1:03:10
Yeah, so
Scott Benner 1:03:12
what am I telling you like everyone smile for anybody listening? Let's do it this way down. Whether you're 12 years old, I'm 48. Right? anywhere in between. If you have access to your parents, give them a call. Say hi to him. Tell him you love him, right? Mm hmm. There's people out there. They're breaking their butts for you. You know, these people? I mean, are you wearing pants right now though?
Dylan Giuliano 1:03:33
Um, yeah. Who
Scott Benner 1:03:35
paid for those pants?
Unknown Speaker 1:03:37
My mom and dad are out
Unknown Speaker 1:03:38
there hustling for you? Do they feed you? Yeah, every day. Yeah. How much food costs?
Scott Benner 1:03:45
super expensive. Unbelievable. They get you that medicine. They take you to the doctor. Um, you see what I'm doing for these kids over here? in grades? You know what I mean? Right. Like, just once in a while hug would be nice. Just to like, Hey, are you you know how many? How many pictures of yourself? You're a kid on the internet? How many pictures of yourself that you taken a week? 100?
Unknown Speaker 1:04:06
Maybe?
Scott Benner 1:04:06
Yeah, send one to your mom once in a while. Be like, yo, look who's here. Dylan who loves you? Right? Plus, you don't want to know like you don't want to like Carl the cucumber better than she likes you. Do you? Hey, if you call your brother Karl the cucumber? Is he gonna punch you or no?
Unknown Speaker 1:04:26
Probably.
Scott Benner 1:04:28
That'll just be between me and you. And the countless 10s of thousands of people who are listening to this. Okay. But don't let Don't let him know. Okay, Dylan, you're a good kid. Man. I really appreciate you doing this. Thank you so much.
Dylan Giuliano 1:04:41
You're welcome. Thank you for inviting me on to the Juicebox Podcast. I appreciate it. I really
Scott Benner 1:04:47
I that means a lot to me. I'll tell you what, do this before we leave. Take a breath, get yourself centered, and say Hi, this is diabetic. They'll pickle and you're listening to the Juicebox Podcast.
Unknown Speaker 1:05:00
Okay,
Dylan Giuliano 1:05:08
because this is doing diabetic to pickle and you're listening to the Juicebox Podcast.
Scott Benner 1:05:14
Very nice. Do it again real fast.
Dylan Giuliano 1:05:17
Hello, this is dialectal pickle and you're listening to the Juicebox Podcast
Scott Benner 1:05:21
doing I really appreciate that. A huge thank you to Dylan for coming on the show and being so honest about his fibromyalgia, type one diabetes, troubles, he's gone through online sharing with people, everything. I mean, guys, he was 12 when he recorded this, check him out on your favorite social media place. He's diabetic, dill, pickle, DUI L and then pickle is spelled like, you know, people spell pickle. All right, what else? Oh, a couple nice things you could do here. Check out touched by type one.org. And go to Contour Next one.com to find out if you're eligible for an absolutely free blood glucose meter, and not just a blood glucose meter, the bestest one that they have. And by they, I mean the world. It's the best one in the whole world. In my opinion. My opinion counts, so does yours. So go see what you think. I just want to say here at the end, that I very much appreciate that you're listening. And that many of you share the show with other people who you think will, you know, find it valuable or helpful or fun? I don't know what you think. But when you think it and you share, it makes me feel warm inside. So thank you very much. Expect at least one more show this week. Maybe two. Hey, those of you who are new to the show and think you're caught up, head back into the archives see what else you can find. There are over 350 episodes of the Juicebox Podcast. Some people who you're listening with have heard every one of them. Don't you want to be one of those people? I want you to be one of those people. Seriously, though, there are a lot of great episodes back there. I hit somebody sent me a message the other day and I'm like, I don't understand why you haven't talked about this. And I was like what what do you mean? And then I asked him how long have you been listening to the show? She's like three months. I talked about that three years ago you got to go look bingeing isn't just for Netflix.
support the sponsors
The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here. Recent donations were used to pay for podcast hosting fees. Thank you to all who have sent 5, 10 and 20 dollars!