#1590 Seventeen Year Old Type 1 Using a GLP
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Returning guest from 1136, she talks about her now 17-year-old daughter’s success with a GLP—better weight, insulin resistance, and mental health—and how she’s experiencing similar benefits.
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Scott Benner 0:00
Hello friends and welcome back to another episode of The Juicebox podcast.
About a year and a half ago in Episode 1136 an anonymous mother came on to talk about her 15 year old type one's use of GLP and how her child's insulin needs drop drastically. That episode was called 15 year old type one using a GLP. Well, that 15 year old is 17 now, and we're going to get an update. Insulin needs are still incredibly interesting. If this is your first time listening to the Juicebox podcast and you'd like to hear more, download Apple podcast or Spotify, really, any audio app at all, look for the Juicebox podcast and follow or subscribe. We put out new content every day that you'll enjoy. Want to learn more about your diabetes management, go to Juicebox podcast.com. Up in the menu and look for bold Beginnings The Diabetes Pro Tip series and much more. This podcast is full of collections and series of information that will help you to live better with insulin. Nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan. The episode you're about to listen to is sponsored by tandem Moby, the impressively small insulin pump. Tandem Moby features tandems newest algorithm control, iq plus technology. It's designed for greater discretion, more freedom and improved time and range. Learn more and get started today at tandem diabetes.com/juicebox today's podcast is sponsored by us Med, US med.com/juicebox you can get your diabetes supplies from the same place that we do, and I'm talking about Dexcom, libre, Omnipod, tandem, and so much more us, med.com/juicebox, or call 888-721-1514, so anonymous, you and I were just talking before we started recording, and we did not make up a fake name for you last time. So you're just Hello. I'll just use Hi instead of names. Hello, yeah, see that works perfectly. It does now the episode you were on previously. Do you know the number of it by any chance?
Speaker 1 2:31
11? I want to say 1136 maybe check that to be so I could verify real quick,
Scott Benner 2:39
1136 you think? I think so. My God, I make too many. I was gonna say I make a lot of podcasts. 1136 15 year old, type one, using a GLP. That's correct. Okay, so I first think, if you're gonna listen to this and you haven't heard that, you're making a mistake, you should go hear that. Yes, let's just give people like a very short, few minute overview that fast forwards right through that first hour and a half that we talked so your daughter was diagnosed with type one. What? Age 1313, and in two years since then, she was gaining weight, is that right? She
Anonymous Female Speaker 3:22
was gaining weight and using a whole lot more insulin than I thought she should be needing.
Scott Benner 3:28
Meaning, and if I recall up to 70 units a day,
Anonymous Female Speaker 3:32
45 to 50 ish a day at the most.
Scott Benner 3:36
So 13 year old, 14 year old, 15 year old, using that much insulin, because people are going to ask over and over again. She had testing and has markers for type one diabetes
Anonymous Female Speaker 3:48
Correct. She had testing, had tested positive for two antibodies, but also was still supposedly honeymooning, because her C peptide was still in the normal range. So for a kiddo still honeymooning, needing 4550 units a day in my brain just didn't compute. Okay, you
Scott Benner 4:05
know. And, and for more background, you had used the GLP for what
Anonymous Female Speaker 4:10
I had used the GLP for PCOS,
Scott Benner 4:13
okay? And it was valuable for you in that regard,
Anonymous Female Speaker 4:16
absolutely, 100% I'm still on it to this day. That is one medication that I will fight to the death for to never have to give it
Scott Benner 4:24
up. There's nothing I wouldn't do to keep my GLP medication because of all the things that I've seen it do for me, but like, tell me for you, what do you feel like it did for you?
Anonymous Female Speaker 4:36
I mean, for me personally, it resolved all of my bloating. It resolved all of my achiness. I was finally able to lose weight. You know, I had been on the cleanest of clean diets, right? Chicken and green beans three times a day, basically, and was still packing on the weight. And so it has. It's just reversed all of that for me, yeah, and I don't have the the bloating and the tummy issues anymore. I can eat. Be not just chicken and green beans, and I have finally lost about 30 pounds, which has been fantastic, and I just feel good. You know, I don't hurt all the time. I just feel good. I'm much, much happier person.
Scott Benner 5:12
I have to tell you that it's a great explanation for how I feel too, like it really is. It's what I did for me. But more importantly, it did it for you. You looked at your daughter and thought, Is it possible she's having some of this that I'm having? Is that right?
Anonymous Female Speaker 5:26
Right? Well, and it just was, you know, she lost a lot of weight prior to diagnosis, we were trying to help get her healthy. We focus on being healthy. We don't focus on numbers. We are trying to get healthy because, because we weren't when she got diagnosed, and we started the insulin regimen and everything, all of that weight, and then some came back very quickly, and I just wanted her to be healthy. And once one of the glps got approval for use in her age group, I approached her endocrinologist about it, and and our endocrinologist was like, Absolutely, let's try it. Let's see how it goes. And started her on it, and I saw so many benefits that were not expected. That has just been that, I don't want to toss the word miracle around lightly, but has been a miracle medication for her in so many ways. She's happy, healthy. She's down 30 pounds, you know, right at her perfect weight, and has kind of stabilized there for a good while now. And it has just been amazing for her.
Scott Benner 6:31
Go over the things you think it helped her with.
Anonymous Female Speaker 6:32
Well, I mean, it definitely helped her with the weight loss, and it helped her insulin resistance, right? Like, I mean, if you go back and listen to the first episode, it was just matter of days that she started needing less insulin. And that's been the biggest impact for her, is, you know, she'll tell you every day of the week she feels like she's not even diabetic anymore, because she doesn't have to think about blood sugar, she doesn't have to think about carbs, she doesn't have to think about pre bolusing. So that's been obviously the biggest impact for her in that
Scott Benner 7:03
way. Did you also believe, if I remember correctly, that she might have PCOS, too?
Anonymous Female Speaker 7:08
I did, and I still do. She is not, you know, with the hormonal testing and everything, she's not testing as PCOS, but I think that's because of this medication. I think this medication is also helping kind of regulate some things for her in that realm as well. Okay,
Scott Benner 7:23
so I think that catches us up now. Episode 1136 went up in February of 2024 it's June now. So it's almost been a year, and maybe almost, you know, get up on a year and a half since you were on the last time. Since then, you will text me periodically graphs or insulin changes, or something like that. So in the last year and change have her insulin needs continued to decrease.
Anonymous Female Speaker 7:50
Her insulin needs did continue to decrease. I was trying to remember, I feel like, towards the time that we recorded the episode, she was on about nine units of basal a day and and no carb coverage, right? No fast acting. Insulin. She's gone down as low as one unit of basal and no fast acting. She's currently at four units of basal and limited fast acting. You know, we just kind of take it day by day. You start to, kind of watch, watch the trends, and see and and sometimes you can see that her body is just getting tired and needs a little bit of help. And so there may be some times where she needs a unit, you know, of fast acting here and there to help out. It's not pre bolusing, it's not counting carbs. It's not, oh, we're going to eat. We need to do insulin. It's it's more reactionary than being proactive for her, because it's not reliable that she's gonna need it.
Scott Benner 8:46
You can't predict what's gonna happen, right? Yeah, but so she goes from a diagnosis to upwards of 50 units of insulin a day, to using a GLP to getting down to nine units of basal a day, to getting down to four units of basal a day, to getting down to one unit of basal a day, and you're not covering meals. Now, what happens when you don't cover a meal? Like people like, oh, but she probably spikes like, what happens at a meal?
Anonymous Female Speaker 9:13
It depends on the meal, right? Because we, we know not, not all carbs are equal. If it's kind of our normal meal, which we tend to do, high protein and maybe moderate carb, she may spike up until like the 150s 160s but comes right back down. If it's a really carb heavy meal, she might hit 180 but again, it's right back down. It's a quick up and a quick down. If we do too many carb heavy things too close together, she might need a little bit of assistance, because she might get stuck in like the 130s 140s
Scott Benner 9:49
but still, that still, I mean assistance from 140 if you stack up too many carb heavy meals, right? This has been a while now, like, have you wrapped your mind? Around what you think is happening?
Anonymous Female Speaker 10:01
I mean, from the very beginning, I felt like what's happening is it's helping preserve the beta cell function that she still had, because she was still testing her C peptide in the normal range, right? And so, like by the labs, she was still honeymooning even two years in when we started the GLP. And even still, at that point, when we started the GLP, her C peptide was like point eight, which was like the lowest end of normal, her most recent C peptide, because we do labs once a year with with our endo and so her most recent labs were in February of this year, and her C peptide was 1.2 and so her C peptide has gone up a little bit. You know, I wouldn't say significantly, but it's gone up a little bit. And to me, that just confirms my hypothesis that this GLP is just helping preserve the beta cell function that she still had remaining.
Scott Benner 10:55
Do you think she's like Lada, but also insulin resistant, like do you think if she didn't have type one, you'd think of her as, like, insulin resistant type two? Absolutely, absolutely. Okay, I do. So she kind of has these two things happening at the same time,
Anonymous Female Speaker 11:11
because, based on the labs, right, honeymooning, she shouldn't have been needing the kind of insulin that she was needing, pre GLP, yeah. And knowing my history, you know, with PCOS, which is insulin resistance. You know, those two go hand in hand, right? I feel 100% that she had some insulin resistance
Scott Benner 11:30
happening. She have any other autoimmune issues. She does
Anonymous Female Speaker 11:33
not yet have any autoimmune issues.
Scott Benner 11:38
People say yet all the time when I ask, they're like, No, not yet,
Anonymous Female Speaker 11:41
not yet, no. Her thyroids testing good. She's not shown any trending, like positive source, celiac or anything like that. So, right, so knock on wood, you know, other than the PCOS, which, again, by the labs, she's not testing positive for PCOS. I think the GOP is helping us there as well.
Scott Benner 11:59
So, is it crazy to think that without the insulin resistance, she'd just be in a very slow onset of type one that you might not even notice? Possibly, possibly. Yeah, it's not as common for me to hear stories of kids with, like, long, lot of presentations, but I do hear it more from from adults, but it does feel like that, like, if you just kind of set the insulin resistance aside for a second because, because basically the GLP squashed that right if her blood sugars were constantly 110 and she had spikes into 140s or 150s sometimes with meals that came back down on their own. Like you wouldn't know that in a otherwise healthy person, correct, unless you ran an A 1c
Anonymous Female Speaker 12:45
right? Yeah. And even then the A 1c wouldn't be high. You know, with those numbers, she she might test as, like, pre diabetic, maybe, yeah, if it had been going on long enough. But
Scott Benner 12:57
Okay, so while I wrap my head around all that, like, switch gears for a second and tell me she's diagnosed type one. She's living full on using 50 units of insulin a day. This GLP comes into our world that she's going the other way, but at some point you imagine this is going to end right, like this. GLP, yeah, this. GLP is not going to do this. You
Anonymous Female Speaker 13:18
just keep waiting for the other shoe to drop, right? And even now, you know, she was down to just one unit of basal, and in very little fast acting, you know, just here and there. And the fact that we've gone back up to four units of basal, I'm like, are we, you know, approaching the end of this? Yeah. And I don't think we are, because, you know, she is so steady and stable with the four units of basal and very minimal, um, fast acting, right? And so, and she had to go up on the basal when she got a really bad cold. I think her body just was tired and needed a little extra help. And so, is it possible that she goes back down to, you know, one or two units? Maybe, I don't know. We'll have to, we'll have to wait and see, but that's always in the back of my head. It's like, anytime that we need to do some fast acting, or anytime that we need to increase our basal I'm like, is this ending or is this just, you know, a wave that we're riding at the moment?
Scott Benner 14:14
So setting aside just the medical anomaly of all this and how interesting it is, like, how do you think she handles that like psychologically. Do you think she's just happy for the time, or do you think that when it goes the other way, is she gonna feel a loss again? I have always disliked ordering diabetes supplies. I'm guessing you have as well. It hasn't been a problem for us for the last few years, though, because we began using us Med, you can too us med.com/juicebox, or call 888-721-1514, to get your free benefits. Check us med has served over 1 million people living with diabetes since 1996 they carry everything you need from CGM. To insulin pumps and diabetes testing supplies and more. I'm talking about all the good ones, all your favorites. Libre three, Dexcom, g7 and pumps like Omnipod five, Omnipod dash tandem, and most recently, the eyelet pump from beta bionics, the stuff you're looking for, they have it at us. Med, 888-721-1514, or go to us, med, comm slash juice box to get started now use my link to support the podcast. That's us, med.com/juice box. Or call 888-721-1514, this episode is sponsored by tandem Diabetes Care, and today I'm going to tell you about tandems, newest pump and algorithm, the tandem mobi system with control iq plus technology features auto Bolus, which can cover missed meal boluses and help prevent hyperglycemia. It has a dedicated sleep activity setting and is controlled from your personal iPhone. Tandem will help you to check your benefits today through my link, tandem diabetes.com/juicebox, this is going to help you to get started with tandem, smallest pump yet that's powered by its best algorithm ever control IQ. Plus technology helps to keep blood sugars in range by predicting glucose levels 30 minutes ahead, and it adjusts insulin accordingly. You can wear the tandem Moby in a number of ways. Wear it on body with a patch like adhesive sleeve that is sold separately. Clip it discreetly to your clothing or slip it into your pocket head. Now to my link, tandem diabetes.com/juicebox, to check out your benefits and get started today.
Anonymous Female Speaker 16:39
That's a great question. I haven't really like talked to her about that. I know she's definitely happy right now. Sure, it's made life a whole lot easier. You know, we've had some monumental life things happen during this time frame. She's gotten her driver's license right and started driving a car and going off with friends, and a year from now, she's going to college, and she hasn't had to struggle with the driving piece, right? We haven't had to worry about blood sugar with driving. That just hasn't been a problem. She doesn't go low, but maybe once a month, you know, yeah, and she doesn't go high. So, like, that's been really nice for her, and nice for me. I don't have to worry quite so much pre GLP, you know, she really was like, I don't want to go away to college. I want to go to college here so I can stay home and you can help me my diabetes and everything. And now she's looking at a college that's almost four hours away. So, like, it's, it's definitely changed things in her world. So I do imagine, you know, if the other shoe drops, and we have to, you know, start counting carbs and all of that again. I think there probably will be a sadness there, but I also feel like she'll be well equipped to handle it when the time comes. If the time
Scott Benner 17:53
comes, I'm glad because, I mean, it just occurs to me that like being diagnosed once is crazy enough, right? Yeah, twice. Hey, you have type one diabetes. Actually, you know what? If you can just take this injection once a week. Most of the problems that come with this should go away. And then you're like, now, you're telling a 13 to 14 to 15 year old like a person in that age. And how old is she now? She's 1717. Now, wow, she's 17. So it's been going on a good long time where she's had this relief. There's got to be a part of her that just thinks, I bet you it'll stay like this forever.
Anonymous Female Speaker 18:21
Yeah, well, and it's, I mean, so she stopped having to Bolus for food in December of 2023, and so that was just two and a half years post diagnosis for her. So we've been not bolusing for food almost as long as she had to Bolus for food, yeah. And so it really is kind of a distant memory. And she, she says sometimes, you know, I don't even remember what it was like to have to, like, figure out how many carbs were on my plate and figure out how much insulin to take, and then have to wait to eat. Yeah, it is going to be like a brand new thing if and when that happens. Yeah,
Scott Benner 19:02
I don't want to think about you like a social experiment, but it is going to be really interesting, absolutely. Like, it will be. I am million percent hope that one day she wants to come on and talk about it because, and I wouldn't pressure, obviously, but like, if she ever had that feeling, I'd love to know, like, all this, this stuff here, I think it's, it's super interesting. I'm looking through your old text messages to me, like, messages to me, like clarity reports that look like, I mean, just look like they're from somebody who doesn't have diabetes. Yeah, you
Anonymous Female Speaker 19:29
know, yeah, it's crazy. Like, I just, you know, in prep for today's call, I pulled her her clarity report and her 90 day average glucose is 114, with the standard deviation of 23, 98% in range. That's
Scott Benner 19:43
it. With a you're using a unit of basal right now, well, anywhere
Anonymous Female Speaker 19:47
from one to four, you know, during that timeframe, okay? And, and that's coming off of, you know, we just went on vacation last week. And in all bets are off on vacation right? Especially when it's all inclusive, and you. Can eat whatever you want, whenever you want. And so we did have to throw a fair amount of fast acting during vacation just to kind of help regulate things a little bit. But by fair amount of fast acting, I mean, maybe, like, three units a day, in one unit increments, here and there,
Scott Benner 20:14
because they spread out over the day too.
Anonymous Female Speaker 20:15
Yeah, yeah. Because, you know, one unit depending on where her blood sugar is. And that's the thing, like, I'm in my brain always trying to calculate, like, what her correction factor would be, or her carb ratio would be. And it can't, because it just varies so much. You know, one unit might drop her 31, unit might drop her 80. It just kind of depends on how long she's been stuck, where she's at, what we have happening, you know, activity, all of that sort of thing. Is she sleeping or is it daytime, right? So toss in one unit even, is kind of scary. Sometimes.
Scott Benner 20:46
Did you ever consider trying a Pres? So because
Anonymous Female Speaker 20:51
she's a minor, Pres is not recommended for
Scott Benner 20:55
her, I see, okay, but that would really be valuable for her, though, right?
Anonymous Female Speaker 20:59
I think it would be, you know, and I, I'm, I'm counting down the days, you know, until that 18th birthday. For lots of reasons, you know, I think it might benefit her to transition to, potentially, a different GLP, would love to try a Fraser would love to try ever since, you know, instead of having to do a new Dexcom every 10 days, you know, lots of things open up when she turns 18. So
Scott Benner 21:20
what GLP, she have now, is it we go V, she's on we go V. You prefer to trynjaro,
Anonymous Female Speaker 21:26
Manjaro, or is that bound? I just I, I'm just curious to see what a different one would do, right? Like has, has her body gotten used to this one, because we did try to cut back. So she's on the maximum dose as maintenance, but she was starting to kind of have some bowel issues, and so we backed off to the next dose down, and I noticed a dramatic difference in her insulin needs and her hunger, you know, all the things we only lasted about three weeks on the lower dose before she went back up again. And thankfully, she's not had any more, you know, tummy issues. And so I think it was, is not related, but we just weren't totally sure. So I would just be curious to see, you know, if a different formulation would change anything. The
Scott Benner 22:14
one thing about the step down is it has the G, I P in it as well, and you're not really looking to curb her hunger that much, right?
Anonymous Female Speaker 22:21
Correct? No, I'm happy where that's at right now. And she's, she's not losing weight anymore, so she's plateaued, and been plateaued for, you know, probably six months or so now, but at a at a healthy weight, right? Like I'm, I'm not concerned about that anymore, but I'm just curious, you know, because I know sometimes bodies get used to medication over time, and so I'm just curious if switching to a different formulation might
Scott Benner 22:47
just make change something. Change something. I don't know what I would
Anonymous Female Speaker 22:50
be looking for it to change. Like, would it bring us back down to that one unit a day? Or would it, you know, possibly eliminate the need for basal altogether? I don't know. Like, I just
Scott Benner 22:59
just a science experiment that you're interested in finding out more about. Yeah, and
Anonymous Female Speaker 23:03
she'll, she'll tell everybody. She jokes with it all the time. Of you know, she says, I'm just a walking science experiment, but she's cool with it. She, she just throws in every now and then, just, don't let me die mom. Yeah, no pressure. But I would be curious to see what a different GLP, yeah, might do. But we've, we've got about a year until we can look at
Scott Benner 23:22
that. So before the GLP, did she have a voracious appetite that you thought was, oh my
Anonymous Female Speaker 23:26
goodness. And even with the GOP, she can eat, okay, it has, it has curbed her appetite, but she still has a very healthy appetite.
Scott Benner 23:36
Okay, there's part of me that sometimes wants Arden to go back to ozempic Because she's using Manjaro. And the truth is, is that I don't think she really needs the appetite curbing as much as it does that like we have other issues, like Arden's not great with injections. So in my heart, what I'd like to see is, I'd like to see Arden take a significant lower amount every five days, instead of the amount she takes every seven days. And
Anonymous Female Speaker 24:05
I do notice it Wayne on days five and six. So I would love to be able to split dose, yeah, as well. Just can't do that with the WeGO
Scott Benner 24:13
V. We go V is in a is it in a self injector? Correct? Listen, yeah. We inject it into a vial and then draw it out with an insulin
Anonymous Female Speaker 24:22
I've thought about that, and I may broach that at our next indo visit, and just see, see what she thinks for
Scott Benner 24:29
Arden, like she doesn't need the appetite curbing to the degree that it happens to her, like there must be an amount of this drug that she could take that would hold her insulin resistance at bay, help her with like, PCOS, stuff like that, inflammation, all the other things I see it doing for and without it stopping her, like, sometimes she's just like, I'm not hungry, yeah. And then she's forcing herself, you know, and she's eating when she's not hungry, which is not great either. You know, it would be nice if there was, I guess what I'm saying is, is that I think there's a pre. Described amount that these drugs are like FDA tested for. So everybody gets a self injector at a certain number. But I think the truth is, is that if we had a more individualized way to measure your needs, it would almost be like insulin, right where you could say, like, yeah. I mean, I know the the norm is this, but for me, it's a little more like this, little less, you know, right here,
Anonymous Female Speaker 25:22
let's see. And I don't think we need less. I think we need more, because she's on that maximum FDA approved dose right by day like five, she could eat everything, you know, days days one and two, she has less of an appetite. Days like three, four and five, her appetite is what I would consider normal, and then for the last two days, she's like, give me everything. Feed me all of the food, you know. And so, like, I would love to keep the same dose, but do it every five days instead of every seven.
Scott Benner 25:53
It took me a while to figure out that I was getting a pizza on day seven. I don't know. I'm a boy. I don't really pay that closer attention. I think it's happening. I would be like, Huh? Am I getting a pizza like, every week? Like, that's weird. And then I stopped and looked at it. I'm like, Oh, I'm getting hungrier day six and seven.
Anonymous Female Speaker 26:12
Yeah, yeah. And I notice it in her blood sugar numbers too. That's what I'm thinking. There's a direct correlation, like, she's much more stable on the front end of the week than she is on the back end of the week.
Scott Benner 26:25
Yeah, it's interesting, because there's part of me that thinks, if they have the luck with the oral medication that they're working on now, like, that kind of fixes that problem in totality, right, right? They can make it work. I mean, going back, there's been GLP pills in the past, the rebels, us, trulicity, like, stuff like that. They never really worked nearly as well as the injectables like Wego V and Manjaro work. It's clear to anybody who uses Wego V Manjaro, is that bound all that stuff like, you know, there's a waning at the end, yeah. So if you could put it in more frequently? Could it be less, you know, or would it need to be, you know, a larger amount more frequently to cover that? And if they're going to have luck making these oral medications that are as, oh, if aggressive is the right word, but as successful as these new injectable glps are, then maybe that just goes away completely, and you just take a pill once a day,
Anonymous Female Speaker 27:22
right? Well, and that's also where I'm kind of interested, you know, with the Z bound, get go higher dosages than what the we go, V goes. And so I'm curious if even just going up to that next number, you know, solves, solves the issue. Yeah.
Scott Benner 27:37
So what's the level of we go, V that she's on. Now, what is it? She's on the 2.4 and that's the largest one. That's the largest one. Okay, and then, but they, the way it's measured is different, though, like, because I'm on like, 12 and a half of Z bound. So let me I think there's also a 15, which I don't feel like I need. I actually, this morning, I think I was my lowest weight ever this morning. That's exciting, yeah. But surprised me a little though, because I kind of had gotten back into that idea of like, oh, this is going to be my window right here. I'm going to be between 176 and 173 like, that's what I just thought my window was going to be. And I was like, Okay, I guess that. I mean, it's fine, like, if that's what it is. And then this morning, I was like, I'm 172 like, I don't think I've ever been 172 so now I'm wondering what's gonna happen, and if this process that you know is now been two years for me, like, is it? Will I look back on it in five years and see that it was more like a three year process, and I didn't realize it, or, like, I don't know, like, it's all kind of fascinating, right? Sorry, what you're looking back at, what?
Anonymous Female Speaker 28:48
Well, I was trying to look at the wegovy dosages to see, because I know that they the dosages are in, I think milligrams, but that bound is in something different. I think I don't know. Yeah, I don't know. It's so confusing. Why they can't all just use the same numbers. We don't want to make
Scott Benner 29:07
anything too easy.
Unknown Speaker 29:08
I know I am
Scott Benner 29:10
looking at a graph you sent me a few months ago. It's a six hour graph where the stability exists overnight right around 90 or 100 and then at 9am maybe 8:30am there's a spike that goes to 180 and then it's back down to 90 by 1030 like so from like 830 it starts. And to call it a spike is wrong. It's a rise to 180 that takes an hour, and then the fall from 180 back to 90 again is maybe an hour and a half. So like it's a window of about two and a half hours. But in that two and a half hours, your text says two bowls of Fruit Loops and a banana.
Anonymous Female Speaker 29:58
Yeah, I was so I was. To ask you if you had the details on what she
Scott Benner 30:01
no eaten. Yeah, she ate two bowls of Fruit Loops. I'm gonna guess that the serving size, it wasn't one cup in one cup and a banana, crazy sugar, and in a two and a half hour period, never went over 180 and was right back to 90 again. Yeah, it's insane, like it feels insane, you know? And she does see impacts, or insulin impacts around, like periods too, right?
Anonymous Female Speaker 30:26
She does. And it's that's when we're more likely to see a little bit more need for some help from some fast acting. Not that she goes high, but she just gets stuck, you know? She might get stuck in the 150s she has her high alarm set at 150 and so when her high alarm goes off, especially during the night at 150 she'll toss a unit at it to help get it back down. But that's typically only a couple of days around her period. Yeah.
Scott Benner 30:55
How long ago does she take her pump off?
Unknown Speaker 30:58
December of 2323
Scott Benner 31:02
it was just like, Wait, this is a waste of time for us.
Anonymous Female Speaker 31:05
Well, when we stopped needing to Bolus for food, she was like, Can I just go MDI? And I was like, I guess I totally didn't think it would last, like, I thought she would get tired of the injections, because she wasn't a fan of them in the first place, right? And so I was like, Okay, fine, whatever. Go off. Because we were using DIY loop with Dash, I figured it would last a couple weeks. So I was like, okay, we can do a couple weeks of it. It'll be awful, and she'll want to go back to the pump. Yeah. Here we are, year and a half later, and I asked her very often, you ready to go back on the pod yet? Nope. I'm happy. I'm like, Well, you want to go on? You know? Moby, nope. I'm happy because in my brain, if we could micro dose would make it so much easier to, like, have even better stability, right? But she's not interested. And I really can't complain. I mean, her last a 1c was 5.3 Yeah, in February. So, like, I really don't feel like I have a leg to stand on to push the issue with her, and she's taken over 100% of her management recently, and so, like, I'm trying to to be more hands off as we're approaching the, you know, adulthood and moving away to college, I want to make sure that she knows what she's doing. Now, we still have conversations about diabetes management, but it's because she's thinking she needs to change something, and she just wants to talk through it first, right? Which I love, because that lets me know, you know, whether she's thinking through things correctly, you know, in the right way, and making the right adjustments, but she's she's done really well with it, yeah, so I feel like I can't push going back on the pump. I feel like it would make life a whole lot easier, but I mean, life is not hard any stretch of the imagination compared to what it was two years ago. Listen, this, though
Scott Benner 32:46
this GLP is ruined. What a great type a diabetes mom you could have been
Anonymous Female Speaker 32:51
I, you know? I mean, we had a 4.9 on on the pod. So it's like, it's really hard for me to let go of that I was so good at it. I'm a numbers person. I had spreadsheets, you know, and now it's like, I was prepping for today's call, and I'm like, I've done really a crap job of keeping track of, like, when we've changed dosages and stuff over the last two years, like, I've written nothing down. I have no charts, I have no spreadsheets. Like, there's nothing to keep track of. There's nothing to keep track of, you know. And I catch myself every now and then complaining about, you know, today's been a hard Diabetes Day, and I'm like, But you know what? My alarms haven't gone off at all. I have slept through the night, you know, 98% of the nights in the last year and a half. I really can't complain, but but that's just, you know, I strive for for perfection, which is impossible with diabetes.
Scott Benner 33:45
I ask you a question pretty frequently, and I feel like it's a little uncomfortable because of what happened. But you are anonymous, so if you're not comfortable talking about this, just stop me. It's fine. But every time I think about this, I think is no one looking into this, like, why isn't, why hasn't the government stolen your child put it in a box, and are there testing her? Why are we not trying to figure out, like, what is happening right here? And by the way, I'm not saying you should, you know, anybody should give themselves over to, you know, anything they're not interested in, but, like, something really unique is happening, yeah?
Anonymous Female Speaker 34:19
Yeah. I mean, I've reached out, you know, just to kind of be like, you know, hey, this is our story, you know, this is how great things have been. I've encouraged, you know, our indo to do the same, and I'm not fully, you know, in the loop on, on what her thought process is, on what she has or has not decided to do, you know, I kind of, I leave that at that level, right? Because I feel like me as just a mom of a type one, I don't feel like I have clout, you know, like, who's gonna listen to me, right? But I do feel like, you know, we're hearing more about it. There are more people because, like, when we. We started this process a year and a half ago, or whenever it was August of 23 I didn't know anybody else who was doing this right, or was experiencing what we were experiencing. And I feel like now, like even just on the Juicebox page, on Facebook, right, I'm I'm hearing more and more stories, and so in my brain, I feel like there's more kind of chatter going on. And I my gut, just tells me that companies are looking into it. We just don't hear about it yet. I feel very strongly that that there is, you know, is interest in research being done, that it just is not published yet.
Scott Benner 35:37
I feel like when I'm looking at people telling their stories online, and even the ones that come on the podcast and talk about it, I feel like what I'm seeing is that if you have insulin resistance, like, not just type one diabetes, because I see people say, like, hey, look, I have type one. I took a GLP. I didn't need to lose weight. And guess what, I used the same amount of insulin as I always used. I think, like, Okay, well, it's not lowering blood sugar or it's it's lowering insulin resistance, but not insulin resistance the way you're thinking about it when you have type one, but insulin resistance the way you should be thinking about it if you're of type two or other kind of metabolic issues like so I feel like what's happening is we're finding people who happen to have type one but also have those other issues, and you can almost split them down the middle, like two different people. It's helping you on the one side of your issue,
Anonymous Female Speaker 36:27
right? It's not getting rid of the type one, right? You have the antibodies positive for them. There's not a blessed thing that you can do about that yet. But I feel like that's almost where the attention needs to go is. Is not necessarily focusing on these glps, but focusing on the fact that it is possible to be type one and have insulin resistance the same time. Because I feel like that is just a knowledge point that is missed. Yeah, so often, like, I feel like folks think about it, is okay, your type two. That's why these medications can help you. But type ones don't have that. And that is absolutely false.
Scott Benner 37:07
The reason you're anonymous is because there's a certain group of people are going to be like, glps, don't help. Type ones, you're an idiot. Like, okay, great, awesome, thanks. That's not what we're saying. Like, hear the whole thing, right? Even. Like, dr, you must have loved Dr, handy. Oh my goodness,
Anonymous Female Speaker 37:21
yes. Like, I was so excited to hear, you know, someone educated and in a position to be able to have influence.
Scott Benner 37:29
It was when I spoke with him, I thought, Oh, this is how this all works. Like a group of people who know what they're talking about, don't listen to nud mix, they just make decisions and then put stuff in play, and then that's how the rest of them decide on treatments afterwards. I'm like, Oh, that's so interesting. Because otherwise you get caught up in anything from, like, you know, YouTubers trying to make clicks on yelling about, like, you're lazy. That's why you're using this, like, all that crap that down to, like, they're giving it the type ones. Now it's dangerous, you know, like, that's not what it's for. Like, just, you know, making an argument off the label or whatever. But, yeah, I mean, that's been my point the whole way, is that there's something happening. It's not happening for everybody. But, you know, if we're gonna sit here, I just listen, I just recorded with somebody, and I said to them, it can't be coincidental that, like, I think the way I put it was, if I did a podcast that wasn't about type one diabetes, I don't think I'd hear from so many people with anxiety. And I think anxiety has something to do with inflammation. I think because you have an autoimmune issue, you have more inflammation. Like these things all kind of like, they coalesce together, they touching each other to some degree or another. We're not good medically, yet, we don't have the expertise to just, like, turn down inflammation, right? So when you see something that does that, I mean, like, you're a great example. Like, you're a person who's eating healthy and you're still gaining weight, and you still have trouble with your, you know, your lady processes, etc, and you put this GLP in, and then poof, all gone nice and fixed, like what happened there? I don't think the understood explanations of what happened there have caught up to what's actually happening, right? You know what
Anonymous Female Speaker 39:12
the medication was intended for and tested for? Right? Right? Is the weight loss aspect of it, and and so all of the rest of this is what I call happy accidents, right? It was not what they were intending to fix or address. It's side effects that just happened to be good ones instead of bad ones. And so now the research has to catch up with that and answer the why. Like, okay, we see this happening, but we need to understand why it's happening so that we can make the right recommendations with the medication moving forward.
Scott Benner 39:46
And my worry is that there won't be enough money in that, or somebody won't see the financial pathway to it, so they'll just ignore it, and they'll just be like, Oh, for the people at Lucky helps, it'll help them luckily. But like, what about the lady who came on and said that? That her bipolar kid had a reduction in a lot of bipolar symptoms on a GLP, you know, if you're going to be reactionary, you go, glps, don't stop bipolar disorder. No one said that. What I'm thinking is is bipolar somehow connected to inflammation, inflammation, right? And then this kid's inflammation went down, and then some of the problems they were having lessened, right? And like, no one's gonna study that you don't mean. And then that makes me sad,
Anonymous Female Speaker 40:26
yeah, because there's so much potential, so much potential to help so many people. I have friends that work in the mental health care industry, and what they've seen as a result of these medications is incredible. That is an area that I feel like we are so far behind the eight ball in research and treatment. And it's, it's a pandemic that's plaguing our people, you know, and it makes me sad when I see something that has the potential to help, but nobody's looking at it through that lens.
Scott Benner 40:58
Yeah, that's my concern too. It's just that. I mean, we tapped into something here, just the benefits that I've seen personally for myself, right? And the one and the ones that you've seen for yourself personally, like, how often is there a medication that will help a female and a male the same medication when it's about like, you have a lessening of PCOS symptoms, I now absorb my iron,
Anonymous Female Speaker 41:23
right? Well, that too for me, you know, because I was anemic and had iron infusions and whatever, and I've not had any like, all my numbers are beautiful, yeah, I just feel good for the first time in I want to say, my life, you know, a lot of these autoimmune things that happened such at an early age that I feel like, you know, now I'm 45 and I finally know what it's like to feel good, right? Like, it stinks that it took this long to get there, but I'm happy I'm there, you know, making the most of it.
Scott Benner 41:53
Yeah, two thoughts, like, I just told my son the other day, I was like, I don't remember the last time I back hurt, and I'm sitting in a chair that you guys bought for me. Like, I don't know if this might be like an old like podcast lore at this point, but one, my back hurts so much.
Anonymous Female Speaker 42:08
Yeah, no, I remember you asking people for suggestions. Somebody suggested
Scott Benner 42:12
chair for me like that might help me. I'm in this chair all the time. My back is killing me, which turned into, like, a lot of lovely people throwing five and $10 into like, a GoFundMe or something like that. Before I knew it, I had 1000s of dollars, and I was like, begging people to stop. I'm like, oh my god, stop. So I'm sitting in an awesome chair. It's steel case, in case you're wondering, it's really great. I still really appreciate the chair. I don't need it anymore. My back does not hurt anymore, and it's not because of the chair, right? The Chair helped, but it's the GLP, and you're like, Oh, yeah. Well, you lost weight, Scott, I don't think it's that my back stopped hurting before I lost the weight, you know, like, I don't think it doesn't not help having less weight, like, joint on my joints, on my body. But I'm gonna tell you is, like, I was six months into glps, and I was like, My back doesn't hurt anymore, right? How come I don't have plantar fasciitis anymore? And some people say, well, it's just the weight. I'm like, I don't know, is it just the weight?
Anonymous Female Speaker 43:04
I mean, it's so many things. It's the weight combined with the fact that you feel good and you can be more active and you have less inflammation, like, it's kind of all of those things. It's not just one, one thing, you know,
Scott Benner 43:16
and not that I was eating crazy, but I'm not eating as much. I'm probably having less processed foods because of it. Because, I mean, honestly, I said to Jenny the other day while we were recording, but like, there's some things that you could offer me, I'd be like, I would not want that, right? And it is food that in the past that would be like, Yeah, that's right. I'll take a little of that.
Anonymous Female Speaker 43:33
Yeah. I mean, I eat far fewer treats when we go to theme parks now, you know, or on vacation, you know, like, we just came off of a five day all inclusive thing, and I didn't go crazy, like, the dessert. There was dessert there, you know, every meal had some aspect of dessert. And I just had, you know, like, half of a dessert after dinner every night. Yeah, yeah. Whereas before, like, I would have just been, like, sweet, sweet sweets all day, you know, it, it changes things. Yeah. We
Scott Benner 43:59
just had this thing. Kelly brought home a few petafores, and I had a vanilla one, right? And I said to her, I'm like, I said, what are these called? Are these called white trash PETA Fores? And she goes, why? I'm like, because they taste like, crimp. It's awesome. She's like, Yeah, you liked it. I was like, yeah. And then I could see on her face, she was like, Oh, I'm not getting any of these pet but the truth is, is I never went back and touch them again, right? One was enough, yeah. And she did ask later, because they got old, and we ended up throwing some of them away. And she goes, How come you didn't finish the white trash metaphors? And I was like, I don't know. I just didn't want it again. Yep, I don't know why. And I think if I would have said to myself forcefully eat one of these every six hours, I would have gotten like, like, through the second one, I would be like, oh, like, I would have got disappointed with myself. And then by the third one, I would have been like, this is nauseating. Yeah, yeah. That is not a thing that would have happened to me before
Anonymous Female Speaker 44:50
the trip. We, very much, like, both of us, hit that nauseating point when we're eating and it's just like, you know you're eating and you're enjoying your meal. And it can even be a healthy meal, right? You're enjoying. Your meal, and then just all of the sudden we hit a wall, and we're like, I can swallow this bite, but I cannot put anything else in my mouth. Yes, you know, it's, I love it when we you know, like, it feels good to hit that point and get full, you know, and recognize that, okay, I've had enough now, you
Scott Benner 45:16
know. And for people who would say like, oh, it's ruining food for you, it is not like food's not being ruined for me. I just it's not, yeah, I'm just not eating an amount that, like, I just don't need. And it there, it bears out in body size, because I'm obviously taking in plenty of calories. Like, I'm not, well, I'm not walking around here, like, going, like, Oh God, I can't hold myself up. I'm taking in the amount of calories my body needs, but
Anonymous Female Speaker 45:39
I'm taking in healthier calories now too. Like, I've never been a foodie. I've always had a sweet tooth, but that sweet tooth is much smaller now, and I need much less. You know, it might have taken four Oreos to satisfy me before, but now I'm good after, like, one or two. Yeah, so I'm putting more healthy things in my mouth and less junk. Yeah,
Scott Benner 45:58
it's a lot about how you want to think of it too. Like, I've heard people say, like, it ruined ice cream for me, and I'm like, You're 30 pounds lighter. Yeah, maybe not. Maybe you disagree. Maybe you're listening like, I'd prefer to have 30 pounds and need ice cream.
Anonymous Female Speaker 46:09
I mean, there are some things that I used to really enjoy that I just don't enjoy anymore because it nauseates me, but I still don't look at it as ruining that particular food item or treat. You know, I look at it as you know, it's really nice to not crave that all the time.
Scott Benner 46:30
It's nice to not be controlled by something is heavy. It's
Anonymous Female Speaker 46:32
nice to not have to have the willpower to say no to it, because it's just not appealing to me anymore. You know, it's not a fight that I have to fight anymore, which is nice. I cannot say the same thing about my daughter. She still gleefully enjoys absolutely everything, and still has to have some willpower when it comes to sweet things. Because, like I said, it's it's lessened her appetite, but she still has a very healthy appetite where we still have to say, okay, that's probably enough, or you probably don't need to go back for a second helping of that, you know, oh,
Scott Benner 47:07
she's young and she's growing still, yeah, all that. I mean,
Anonymous Female Speaker 47:11
at 17, yeah, young and growing and and a lot of it is social for her too. You know, it's when she gets together with her friends, they go out for pizza, you know, like, it's what they do at this age. And so I try not to harp on it too much. I'm just crossing my fingers when she, you know, moves away to college and is eating in the dining hall that it doesn't all just go to heck. But
Scott Benner 47:32
I'm worried. I mean, listen, I have no, no business being worried for your child. But like, I'm worried for because, like, I think, I think, God, what if it's her sophomore year? Yeah, all of a sudden she just needs the insulin again. You know? Oh,
Anonymous Female Speaker 47:47
yeah. That's that's definitely something that that I think about, and that's something that she's thought about too, because we had that conversation recently of like, what if I get to college and I get all settled and everything, and then all of the sudden my blood sugars just go off the rails. Yeah, and that's where we have the honest conversation of like, well, that's when you call me, and that's when you call the Endo, because we have our lovely concierge indo, you know, who's there at the drop of a hat for whatever we need. You know, we just, we'll cross that bridge when we get to it. And I don't even say if we get to it, because I feel like that holds out hope that we might not ever. I tend to be like, you know, we'll cross that bridge when we get to it, and then, if we never get there, we're pleasantly surprised, right? Like my typical optimism is living in the pessimistic side right now.
Scott Benner 48:33
Well, I, well, I remember interviewing that the gentleman that had this happen to him, right? He was like, type one for like, six years, but he was clearly Lada, but then he was also had a weight issue. So the doctor threw him on the med for weight, and then his insulin needs went, like, completely away. And I remember trying to say to him, it's not gonna last forever. And I felt like, if I'm remembering it correctly, because it's my takeaway from it, that he was sort of like, well, it might. And I thought, I guess maybe, but like, Yeah, I think you're just on a very slow, lot of progression. I mean, nobody knows, right? Who knows? Like, we're just guessing based on other conversations we've had with people. So
Anonymous Female Speaker 49:10
nobody knows. I mean, I know that there's been that one hell of I want to call it a trial, because it was like 10 people right that I found early on, when we were early in this process, that you know, followed these, these adults for a year, and after a year, you know, six or seven of them were still not on any insulin at all, after previously being on insulin. And so, like, I feel like there's hope for it to last a decent length of time, but past that, I feel like it's nobody knows, right? So it's, it's which way do you care to prepare yourself, right? Do you want to live in the glass half full, you know, like this is going to last for forever? Or do you live in the glass half empty, and then are pleasantly surprised? If it lasts,
Scott Benner 49:55
yeah, longer than you think it will just I, for me, I would just take as much of it as I. Got, yeah, exactly
Anonymous Female Speaker 50:01
like we're loving every minute of it, but are fully prepared, you know, with an action plan of, like, if we start to see, you know, this, right? Or if the A, 1c, hits this number, we'll re evaluate and see what we need to do differently. Yeah, it's interesting. I mean, I feel like it's honeymoon, right? Like, for folks that that experience the honeymoon, you know, think back to that timeframe of, you know, one day you needed virtually no insulin, and the next day you needed more, right? And that it was this roller coaster, or however long it lasted. I kind of feel like that's what this is, to a certain extent, right? Like it's just we're riding the roller coaster, and some days we have very little need, and some days we have a little bit more. We clearly don't have full need, right, of full insulin support. And so that's the way I'm choosing to look at it, is this is a honeymoon. It's going to end at some point, but I will continue to be thankful for every day that we get in our current reality, just
Scott Benner 51:03
not a honeymoon with, like, drastic, like, Yeah, well, I don't
Anonymous Female Speaker 51:06
know. Like, I feel like it was pretty drastic, having to go from one unit to four, if you think about it, like, that's a huge increase.
Scott Benner 51:13
I meant, like, the big meal spikes that you don't know if you should Bolus for or not, like, that kind of stuff, although you still said, like, you know, I can give her a unit, it's too much, or I can give her a, you know, it's too little, but right, you know, I'm saying, like, people look up during a honeymoon and, like, everything's fine, and then, you know, for four days they their blood sugars are 300 and they get the nerve up the Bolus for it. Then all of a sudden, the pancreas comes back in. Oh, don't worry, it's lows, yeah. Now you're putting in all the insulin,
Anonymous Female Speaker 51:39
yeah, yeah, no, it's definitely not drastic, but that's just the way that I'm choosing to look at it again. Like, definitely thankful that we had this happy accident and discovered, you know, that the GLP did this for her, and happy that it's still working for her. But really, you know, happy that she's healthy from a weight perspective, from a cholesterol perspective, like all the things, like, happy that she's healthy, happy that she's getting this, like, mental break during a time where she has all of these extra stressors, right? Of like driving and being comfortable driving alone, and then driving far distances alone, and then, you know, expanding her horizons and able to think about, you know, going away to school versus staying local for for school. You know, I'm happy that all of the stars aligned as they did when they did. For her sake.
Scott Benner 52:29
Don't let me put words in your mouth, okay, but I have a que. It really is a question. I just, I feel like people are gonna be like, you talk to her privately. You know this already, this is not a thing. I know. It's I'm wondering out loud, do you think if she doesn't see the GLP, if it never comes into her life, is she a severely overweight kid right now? Right now? No, I know. Without the GLP, if the GOP didn't show up, do you think she'd be an overweight person right now? She
Anonymous Female Speaker 52:54
was, I mean, she she, she met the BMI criteria to be prescribed to the GLP, right when she started it, and that number grew, you know, consistently. She was not plateaued by any stretch of the imagination. Yeah, you know, to all the naysayers, it wasn't because we ate crap, you know, we kept food journals. We worked with nutritionist, we worked with the Endo. Didn't matter. It didn't matter. It didn't matter. The one thing that we were not great at was exercise. But she was 13, you know,
Scott Benner 53:30
yeah, I mean, she's still moving around a
Anonymous Female Speaker 53:32
little. Nature is good at going to the gym. Could we have done better in that regard, absolutely. But would it have changed anything I, in my heart of hearts, really think it would
Scott Benner 53:42
not have, yeah, you're just, you're being generous. Right now, prior to
Anonymous Female Speaker 53:46
diagnosis, we both did weightlifting. We started weightlifting when she was eight, and found a gym that would train us together. And she was still a little chunk right at that point, and that was, you know, like we were weight lifting with the goal of doing a weight lifting competition, you know? So it wasn't we were just going to the gym and picking up this and picking up that, like, yeah, like we were doing deadlifts, and the kid at eight years old was dead lifting 140 pounds. Even if we'd have gotten to the gym every day, yeah, I don't think it would have addressed the issue, which I fully believe was the insulin resistance,
Scott Benner 54:24
right? Four years later, at 17, without the GLP, she would have been shockingly overweight. Like, correct? Yeah, I would have seen her and thought like, Oh, what happened to that kid? Like, that kind of thing, right? Yeah. Like,
Anonymous Female Speaker 54:35
like that. That would have been the kid that, you know, I hate to admit this, but we all do it, right? You look at them from a distance and you judge the parent, yeah.
Scott Benner 54:45
Then you're trying to give the background. Of the background is chicken, green beans, weight lifting, right? We weren't running 20 miles a week, but like, if you're 13 and you've got to be a CrossFit person, just not to be overweight, something, something's not right? I just want. People to, like, think of it that
Anonymous Female Speaker 55:01
way, like, right then we weren't doing the McDonald's every day or the pizza every day. Yeah, you know, we were eating healthy ish. I don't want to come across like we were, like, eating completely clean, high protein, no carbs, because that is far from the truth. But we were eating healthy. Ish, what we were eating should not have put that kind of weight on either one of us. You ate
Scott Benner 55:25
and acted in a way that made her weight surprising. Correct? She shouldn't have been where she was for what she was doing. And that's the thing. Like, I want people to hear and I don't think of it as like a visual thing. Like, I'm not coming from a like, a place of like, what people do or don't find visually appealing. I don't care about that. I'm talking about, like, a healthy amount of weight on your body or not so. And I bring it up because, for people who are listening to this right now who are like, Yeah, you know what? I don't actually eat that poorly, and I do move around a lot. Why is it I weigh 100 pounds more than I should? Like, I'm gonna tell you, it's because, like, there's some setting in your body that's not working quite right, and it sucks to then blame that person for their entire life, or blame their parent, like, Oh, what did you feed that kid, like that kind of crap, when this is just the metabolic misfire, right? Somewhere along the line, right? And also, by the way, isn't it interesting that we can in one side of our mouth have a conversation about all this processed food, what Agra is doing to us all. And like, did you know that, like, a cigarette company owns a food company and like, they're trying to kill you? Like, if that's true, then how come, once it happens to people, we go, Hey, what'd you do to screw this up? Like, wait, what like did you not just tell me all the food I have to eat is killing me? Like, here's what it looks like, you
Anonymous Female Speaker 56:45
know? And the thing too is, like, eating healthy is expensive, you know? And it's, I'm a single parent, right? So, single parent, single parent income. I have a very good job. Don't get me wrong, I get paid very well. We ought to be able to prioritize healthy food, right in our budget. But that's not the case for everybody. You know if, if all you can put on your table is the processed food, people are not going to just not eat. Yeah, what am I going to do? Starve? Right? I think that it's so unfair that that is the reality for so many people in and I hold out hope that we can pivot right and get rid of some of these ingredients that are, you know, causing all of these problems for folks, or lower prices on the healthy stuff. Like, there's got to be a way, right? There's got to be a way to get healthy food in front of people that doesn't cause them to, you know, not be able to pay the electric bill. Yeah, you know that that should not be a decision that anybody has to make, but I fully recognize that that is not the world that we live in, and that that is very much a decision that people have to make. And I hold no judgment right against that, you know, because if you see a kid that is not nourished in the way that you think they should be, you have to understand that there is more than likely, so much more to that story than what you see on the surface. And I just think that that's unfortunate, and I hate it, and it breaks my heart.
Scott Benner 58:15
I feel the same like when people are yelling about personal responsibility, like I'm not unfeeling of the idea that you're in control of your ID, your decisions, like, that's fine, but like you're saying, there's a lot of other implications that lead to the decisions you end up making, right? And then I just find it odd to hear from people you know, the same person who would tell you, like, the government's taking all my money through taxes. Like, you know, like they seem to see the pitfalls of other parts of their life, but like when it comes to this, they don't see the like, I'm broke, or I didn't understand what good health was, or I didn't understand what good eating was, and I got caught in a cycle. And you know, this happened to me, or guess what? I eat fine, but I have a metabolic issue and and it still happens to me, like, I don't understand the judgment part of it, right? I swear to you, the thing that confuses me most about glps is that, I mean, I have a little more, longer of a window. I'm older, right? So I'm 53 I lived through a time when, for a decade, people in media would talk about like, you know, this, you know, weights an issue. It would just be wonderful if modern medicine could figure this out. People just begged for that for
Unknown Speaker 59:25
years. Now, Modern medicine
Scott Benner 59:26
has figured it out. And everybody's like, lazy, mad about Yeah, I'm like, Oh, my God, you people are fickle.
Anonymous Female Speaker 59:32
And the piece that is important to remember too is like, weight is not the only thing, right, right? When you are overweight, you have so many other comorbidities that come along with that, and so it shouldn't matter why I'm the way that I am. What should matter is doing what I need to do to get healthy, because that then impacts heart health, you know, stroke risk, all of the other things. That kind of walk hand in hand with that weight. It's not all about the weight, and that's where I've tried to keep it with my teenager. Is, you know, it's not just the weight, it's health, like we need to be healthy, right? Whatever you need to do to get there. It shouldn't matter. All that should matter is that you get there.
Scott Benner 1:00:20
I don't care how you have to get to happy today. Live a long time. Whatever that is, do that, if it's right. And for some of you, it will be chicken and green beans and sit ups and it's awesome, like, right? But again, you don't I, you know this person's not saying their name because of people who will be like, nasty to her, right? You can hear it like it's one of my questions for you, like you have such a great attitude. Like, I always wonder that about you, like you're a very upbeat person. You're hearing from a person who's being honest with you. They're telling you what happened. They're telling you, look, I didn't eat great, but we ate really well. We tried really hard. We were keeping food journals. We were doing the thing my daughter was still gaining weight constantly. She was on her way to something unhealthy. Er, and what do you care how we got back to it like she's happy and she's healthy and she's on her way? And why would you care if that involves a pill or an injection or and in my mind, it's you're so willing to point at like, red dye number this and say, look, it's killing us. It's okay to agree that when something's added to our diet, that it could be bad for us, but if we can add something to it, that would be good for us, and it's an unnaturally added thing, like, suddenly that's wrong. I don't know where that comes from,
Anonymous Female Speaker 1:01:33
and I fully recognize that there are people out there who have terrible, horrible side effects. Yeah, no certain medications, right? And I am so, so, so sorry that that happened to those people. And I promise that if any point in time, myself or my kiddo start having terrible, horrible side
Scott Benner 1:01:54
effects, you come back and tell somebody Yeah, and you would tell somebody to know,
Anonymous Female Speaker 1:01:59
like, we figure it out, I it's not one of those things where I'm going to be a lot of people see it as reckless to put these medications into their bodies. And this is not something that I'm even though I am so so so happy with how we are doing with them and how we feel if at any point the tides turn, going to keep, you know, injecting it right? Like I if we're ever given a reason that we need to quit, we figure it out, right? Yeah, I just want to, don't want to minimize the experiences of other people, right? And, and I it sucks that that happened to people thyroid medication, there's one that I have a really crappy reaction to and one that I don't right. And so I'm gonna take the one that works well for me, not the one that I have the crappy reaction to, and the one that I have the crappy reaction to is the one that, like 99% of all the other people take, just fine, you know? And so not every kid, every medication is meant for every person, so I want to acknowledge that too, you know it. And so it's not because a lot of people will come after this and be like, Oh, you're being reckless, you're endangering. You're both of your child, you know? I appreciate your perspective, and I appreciate your opinion, and I appreciate whatever your experiences have been. I'm just sharing ours, right, you know. And if you haven't figured it out, I'm extremely type A and I'm paying very close attention to everything. And so is our doctor, you know. It's not a negligent, you know, throwing caution to the wind type of thing.
Scott Benner 1:03:36
I would tell you the same thing. I also do feel very badly for anybody who you know has heard about any medication and then tried it and had a not a good experience, but a bad experience like that. Sucks that it didn't work for everybody. It really does. Doesn't mean it's not working for you. And I would also say, slightly provocatively, don't tell me I'm being reckless with your vape in one hand and a Dr Pepper in the other hand, because that happens too. Like sometimes I see the people pushing back, and I'm like, You're not exactly the bastion of health over here. See, it almost feels like a political stance to me. This is what I believe, that if you just work out and do a sit up, this will be okay. Sure, I'm overweight too, but it's because I don't do a sit up, and you don't get to cheat your way to the front of the line. Like that whole like that part of the conversation confuses the hell out of me. The rest of it, I understand that part gets me. I don't understand how people have like reactions like that, which I've seen over and over again, and I've seen to my face. I've heard on the podcast, I've heard I've seen it online, like, that idea of like, you cheated, and like, I'm like, oh God. Like, I mean, I'm just trying to stay alive over here,
Anonymous Female Speaker 1:04:40
right? See it as a cheat, whatever. But like before, I quote, unquote, cheated. I worked my ass off.
Scott Benner 1:04:46
I tried a lot of things.
Anonymous Female Speaker 1:04:50
If you see me indulging in, you know, a slice of chocolate cake, or you don't see me in the gym five days a week, you know, I did. My time. Hey, listen, I
Scott Benner 1:05:02
want to say the pet of four. I was an inch across then an inch high. It was first, right,
Anonymous Female Speaker 1:05:06
right? Well, like and we went on our little all inclusive vacation. And you know, the portions that they serve you at those places are tiny, right? Because you can have as much as you want. You might order a piece of cheesecake. It. It's like the teeniest, slenderest piece of cheesecake that could ever possibly serve without it just completely breaking. And I would eat, like, four bites of it.
Scott Benner 1:05:25
We definitely save money sometimes at restaurants, you know, the end of the meal, some they're like, Do you want a dessert? And we're like, we have to come up with one that we can all agree on, because, right, everyone's going to just stick a fork in it for a minute.
Anonymous Female Speaker 1:05:38
We definitely save money at restaurants, because we split meals. Now, you know, no no longer ordering, you know, two separate meals. It's we order one and still have some left when we're done. I
Scott Benner 1:05:47
swear to you. Martin and I went out the other day, and I was like, What are you getting? And she said, what she's getting. I was like, I was gonna get that. And she goes, Why don't we just get one and
Anonymous Female Speaker 1:05:55
split it? I was like, that's a good idea. Or, like, kids meals. I'm like, they laughed at me at the vacation place because, like, I was always and forever ordering off the kids menu. Because a I like plain food. I'm not an adventurous eater, but I also know I'm not going to eat very much. And so I would order the kids meal, you know, and they'll, they'll serve a steak and potatoes on the kids meal. And so I would order the kids steak and baked potato and eat, like, you know, three quarters of it and be perfectly content.
Scott Benner 1:06:22
All right. Is there anything I haven't asked you about that you would want people to know about? I don't
Anonymous Female Speaker 1:06:26
think so. I mean, it's been an interesting journey. I don't know where it will go next, but I know I'm loving living in this moment. You know? I love that my teenager is off with friends at a theme park today, and her blood sugar is currently 85 and I know she's had lots of wonderful treats because she loves the treats. And it's 8 million degrees outside, and the heat's not kicking her butt, and I haven't gotten a Dexcom alarm in, you know, a couple of weeks, awesome, and so I'm loving it. I hope that more people have the opportunity to try this, you know, and see what it can do for them. But the same disclaimer that I left at the end of of the first episode, please don't just go get a GLP from some Med Spa somewhere without knowing how insulin works. How insulin works for you, and fully prepared to pivot and make adjustments quickly, yeah. Because when we very first started this journey, things changed, and things changed fast on a large scale, you know, the the adjustments that we made were not reducing, weakening our carb factor by one, you know, 25 and 30% cuts of basal every two days. You know, like ridiculously fast and so please don't willy nilly, get your hands on a GLP one from somewhere and jump in without being fully prepared and without having resources to help you along the journey. If
Scott Benner 1:08:01
you are one of those people who's having like, significant insulin resistance, you don't realize it. And this GLP jumps in and starts working right away. The amount of insulin you're using could be significantly too much. Yes, make yourself low really easily. I'll have
Anonymous Female Speaker 1:08:15
to go back and listen to the episode to remember exactly, but I feel like it was like within the first month, we were using half the amount of insulin, and it was quick, and it was, it was scary, and I, I'm type A, I know what I need to do. I have my plans. I have my supplies. I'm constantly have, you know, blood sugar numbers up somewhere visible at all times. And I even got rattled. You know, I'm not saying I'm the end all be, all of diabetes management as far from from the case, but, like, I was 100% involved and invested in my daughter's diabetes management pre GLP one, yeah, and it still rattled me. And so I just, I just want to say that same disclaimer of like, you know, please, if you want to do this and you want to try this, please make sure you have your squad with you, right? Make sure you have somebody to walk the journey with you. Don't just jump in blindly and not know. You know if you're not comfortable making changes to your insulin dosages, do not take a GLP one, unless you have a doctor or someone that's going to hold your hand through the journey, right? Like know that about yourself before you jump in. You are going
Scott Benner 1:09:19
to have to be comfortable making those adjustments and making them pretty quickly. Pretty quickly. So, yeah,
Anonymous Female Speaker 1:09:23
yeah. So that's that's just what I want to leave with people. And I know I said the same thing the last time, but I don't want, I want folks to get excited about the possibilities, but I don't want you to get so excited that you don't think it through fully before you jump in.
Scott Benner 1:09:36
Right? I would also tell you, like be prepared to be one of the people who has type one and takes it and goes, this did not change anything for me, right? Like it could, very well could be the case. And like I said, I think it has more to do with what you're going to see become more prevalent over time, which is you're going to start seeing more and more people getting a dual diagnosis of like insulin resistant type two and. In type one. And if that doesn't make sense, you should go find the episode with Dr Hamdi and listen to him describe it. But he says that the way we diagnose diabetes is going to change quickly, and he is one of the people in the medical profession who has a say about how things like that happen. So right, you're definitely going to see more and more of it coming up. So okay, well,
Anonymous Female Speaker 1:10:21
thank you very much. The last note I want to leave with people, because you know me, and I'm the eternal optimist, is, if you're listening to this, you are doing a good job. You are investing in your health, or your child's health or someone that you care about. Keep doing that. There are going to be hard days, but there are going to be good days, so don't give up, and be sure to let us know how we can help.
Scott Benner 1:10:43
Oh, absolutely, yeah, yeah. Have a community, be a part of a community. And I think the same thing like, no matter what your outcomes are, it's your effort and your interest. I think that is the most important. I end up saying that to a lot of people when I speak to them privately and they're scared or it's new, and I say, No, you're going to be okay. And they want to know how you how can you how can you tell and I said, Well, you're asking the right questions. You're interested and you're motivated to do something about it that, generally speaking, is what it takes to get there,
Speaker 1 1:11:10
correct? So keep up the hard work. We're all here rooting for you. Cool.
Scott Benner 1:11:13
Thank you so much. I appreciate it. Yep, bye. You
the podcast you just enjoyed was sponsored by tandem diabetes care. Learn more about tandems, newest automated insulin delivery system, tandem Moby, with control iq plus technology at tandem diabetes.com/juicebox there are links in the show notes and links at Juicebox podcast.com, the conversation you just enjoyed was brought to you by us. Med, us. Med.com/juicebox, or call 888-721-1514, get started today and get your supplies from us. Med, hey, thanks for listening all the way to the end. I really appreciate your loyalty and listenership. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox podcast. If you're looking for community around type one diabetes, check out the Juicebox podcast. Private Facebook group Juicebox podcast, type one diabetes, but everybody is welcome type one, type two, gestational loved ones. It doesn't matter to me if you're impacted by diabetes and you're looking for support, comfort or community, check out Juicebox podcast. Type one diabetes on Facebook. The episode you just heard was professionally edited by wrong way recording, wrong wayrecording.com.
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