#1610 The Ex
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"Mike" shares his family’s journey after his daughter’s type 1 diagnosis at 10. She just marked her 4th diaversary.
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Scott Benner 0:00
Welcome back, friends. You are listening to the Juicebox podcast.
"Mike" 0:14
I am a dad from the Northeast with a daughter that just celebrated her fourth anniversary this past weekend.
Scott Benner 0:22
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"Mike" 2:20
I am a dad from the Northeast with a daughter that just celebrated her fourth anniversary this past weekend.
Scott Benner 2:26
Awesome, actually, that testing was so good that I'll just keep talking, and we'll keep all this together in the episode. All right, so today's guest is going to remain anonymous, because we're going to talk about a few sensitive subjects. Now here's the thing. I could talk to you without a name if you want, or we could pick a name. Do you have a favorite name that you always wished your parents called you or something like that?
"Mike" 2:47
By the general, everyone wants to be a mike, right? You just want to be Mike.
Scott Benner 2:52
Mike sounds pretty good. All right. Well, then if we're having a conversation and I'm drawn to say a name, I will say Mike. So Mike, tell me how old your is your daughter, right? How old was your daughter when she was diagnosed?
"Mike" 3:05
So she was 10 years old, almost 11, and we just celebrated her fourth diversity this past weekend, actually.
Scott Benner 3:14
Well, so it's been 2021, in June, exactly. Okay, yep. And a lot about what we're gonna talk about is you're divorced from from your daughter's mother. So are you together then when the diagnosis happens, or are you already separated?
"Mike" 3:31
No, we were already divorced at that point, and she had been remarried, and I was on the verge of getting remarried myself about a month before, month after we got married, a month after the diagnosis came. So there's a lot going
Scott Benner 3:44
on. Yeah. Oh, so your fourth anniversary is coming up next month that too. Yeah,
"Mike" 3:50
it's all tied together diabetes and and marriage and stuff like that. So it's kind of it's a bittersweet time of year for us, for sure. You know, we look back on the diversity and think back, I still think back to those early days and how tough it was, and confusing and just so much going on, and then a month later, just so much to celebrate for my daughter, and obviously getting remarried, and, you know, her having a step mom and stuff like that. So it's, it's quite a unique month for us, for
Scott Benner 4:15
sure, little conflicting, right? Yeah, yeah. So tell me about the diagnosis. How did you notice what was happening? Was she with you or your ex at that point? So
"Mike" 4:25
it was one of these things where, like a lot of parents, you know, you blame yourself. You wonder, how did, how could I have missed this? And basically, it kind of caught on by storm. She was having used the bathroom a lot. It was drinking a lot of water. It was the end of the school year. It was really hot in the classroom. So the teacher said, you know, how come you filled your water bottle two or three times now? Oh, I'm just really thirsty. And then, you know, we're there's this stuff going on towards the end of a school year and summer beginning excited, and next thing you know, she's going to the bathroom a lot. And it was just concerning. And I think the tough thing was. Was, we were out to eat that weekend, and she never really asked for sweets and and, you know, Shirley Temples times 10, and she was just, we were at a restaurant, and it's like, why you keep asking for refills and Shirley Temples? And why are you asking for dessert? And she was craving it, and it was just out of the ordinary. And then I think she went to the bathroom. I have it on my phone still to this day, like it was like, 13 or 14 times she went to the bathroom this one day, and I said, this is just, I don't know what's going on. So I called her mom, and we said, you know, I think we needed to bring her into the doctors the next day. And it was our last day of school, and she was so upset, because I just want to be with my friends and sorry we got to go. And it just wasn't like a really emotional, really crying, really upset. And when we got there and got the diagnosis the next day, I was just, I just remember being floored. You know, it's just like, how did we miss this? But looking back at pictures, she had, like, a dance recital, skin and bones, I remember rubbing her back one night and feeling like her spine, and I was like, that's weird. And God, just yeah, it's just, like a lot of parents say on this, how'd I miss it? How'd I miss it, but, but here we are. There we were. So
Scott Benner 6:05
I listen, I literally joke to my wife, we were in a hotel room. We were getting the kids, like, washed and everything, and Arden comes, like, banging out, like, two years old in a diaper. And I looked at my wife and said, Hey, is she like, going for, like, heroin chic or something, like, what's happening here, you know what? I mean, like, and like, she's really thin, but, I mean, you know, so cut yourself a break, because I didn't go, I wonder if something's wrong, you know, like, I said the first part and didn't say the second part. But I know, I know you feel those
"Mike" 6:35
photos when they come up, baby, or they're still really hard to look back on, yeah, when you see where she was at right before diagnosis, just, man, you know, it's
Scott Benner 6:43
Yeah, but you knew enough to say, like, we have to go talk to a doctor, sure, 100% okay, did you go right to the hospital, or did you go to a physician? Went
"Mike" 6:53
to the physicians, and then they did, you know, they did some blood work, and then they did a finger prick. And, you know, I think it was pretty obvious to them. Yeah, it was pretty obvious. And they said, we just want to do one more test. And then when they did, I think it was the A 1c test or something, yeah. And they just basically said, you know, this is what it is, and you guys need to get to the emergency room right now. And I remember just thinking like, I'm about to go back to work, you know, she's about to go back to school for last day. We just thought, we didn't know what we thought at that point, and then it was just like, wow. And then just everything was just so real and so hyper focused, of all right, let's go. Let's get there, and let's see what is going to happen in the next three days. Was just so much, you know, crazy
Scott Benner 7:34
at that point. Do you and your ex have a contentious relationship? Is it good? Like, where were you at that point?
"Mike" 7:42
I mean, good enough. It's one of those things where, when it comes to our daughter, we mostly get on the same page. So when it was something like that, it was just all right, let's go. All that matters is her, and let's, let's get headed there. You know, I would say that for me, you know, going through that, seeing your daughter kind of in that, in that state, it's really hard to see as a parent. But then, kind of joke, the worst part for me was staying in the hospital room for like, two nights, and having to, having to spend a lot of quality time with me, the ex, and my daughter that was, that was rough, you know, reminded you why you're divorced, for
Scott Benner 8:21
sure. Give me a little context. How long had you been married before you were divorced, and how long had you been divorced for by the time the diagnosis happened?
"Mike" 8:27
Yeah. So we're married just over five years, and then we were divorced. By the time diagnosis happened, we were divorced for like, nine years, so it'd been, it'd been a good chunk of time, yeah.
Scott Benner 8:39
And so during those nine years, you just see each other, like, hand offs, right?
"Mike" 8:44
It was mostly hand offs, but I mean all the activities too, and school activities, sports activities, okay, we had, like, some mutual friends, but sometimes it was more than that. Unfortunately, just because I was the last to get, like, remarried in my single years, it was tough. I was definitely I felt like controlled. I would do anything to see my daughter follow, like, any rules that the other side set. I would do anything to get extra time beyond, like, you know, what we agreed upon, and stuff like that. There's a lot of things I did that I don't do now, now that I'm remarried and have, like, a another partner, kind of in my year, like, hey, you know this isn't, isn't how it has to be, and stuff like that. I
Scott Benner 9:20
don't know another way to say this. Like, was she fcking with you so that you could and you took it so that you could see your daughter more? I think it
"Mike" 9:27
was more just, if they needed favors or calling the shots, she knew, like, I wasn't gonna, like, balk, yeah, it was definitely able to see her more or or just things like, outside of what we agreed upon. Nothing like crazy bad. But it was just, I guess I didn't have a backbone at the time, and I'd do whatever it was to see my daughter.
Scott Benner 9:43
No, I understand. Okay, so All right, so that's the timeline for that. I see you guys are in the hospital having a family sleepover. Is that confusing to your daughter that the two of you were together like that for so long? Do you think?
"Mike" 9:55
No, I mean, I never really talked to her about it, actually, like, I don't think it was even something that, like, she. You wish, you know, like, somehow some kids wish, like, Oh, I wish my parents to get back together. I think she was smart enough to know, like, the only good thing about our divorce was she was young. She was wasn't even two yet, so doesn't even recall, like, the three of us living together, yeah, and it's kind of like what she's used to had been like, living, you know, with two separate houses and stuff. So I think maybe for her, maybe it was comforting that both my parents there, but anyone, even her at 10 years old, could see how clearly different the two of us are and how we operate and how it's like oil and
Scott Benner 10:28
water. Yeah, it makes sense other autoimmune in your ex wife's side or your side,
"Mike" 10:34
not on my side, but ex wife, I think there's, like, some thyroidism and maybe like something else, but a long time ago, like one person may have been, like diabetic might even been type two, not sure, 100% okay, but we're, we're wondering too, if we've heard all these rumors about the rise of diagnoses after covid or something like that. Like, who knows? I mean, honestly, it's one of these things where I go back and, like, how did it happen?
Scott Benner 10:59
Where'd it come from? Did your daughter have covid? Yep, she did, okay. How long before she was diagnosed?
"Mike" 11:07
I think she had it, but we didn't know at the time. We thought it was just like the cold, like everyone did. So it probably would have been, I would say less than a year. I'd probably say about, like eight months or so.
Scott Benner 11:17
She had covid. Like, early 2020, late 2019, early.
"Mike" 11:21
Like, I would say the spring, or like summer 2020, something like that. Oh, okay. Oh,
Scott Benner 11:26
once you get through the hospital situation, I mean, I assume you're on some sort of a schedule. She spends certain amount of time here. Tell me what that schedule was prior to the to the diagnosis.
"Mike" 11:35
So it was like a every other weekend thing. But then when it's not my weekend, that would have the Thursday before overnight and the Monday after overnight as well. When it's not my weekend, okay, I have like, a 14 day rotation. It was like five overnights out of 14, and I would see after school sometimes too. Just not, like overnight.
Scott Benner 11:55
But if I was going to categorize it, I'd say she lived with her mom and she visited you. That's the vibe.
"Mike" 12:00
Yeah. I mean, it's definitely not 5050, it is in the summertime,
Scott Benner 12:04
okay, but during school, it's for school reasons. Yep, okay. Is that how you wanted it, or is that how it ended up?
"Mike" 12:11
No, definitely not. Went to court a couple times, and you know, it was just one was when it first happened, and it was what it was, and another time was when she was a little bit older, probably, like a year, I would say it was right before the diagnosis, but during, like, the covid time, when we're kind of running, like on a 5050, schedule because of the covid time in two households. So I thought, hey, this is how it's been for most of covid and she's older, you know, from when we first agreed upon the custody stuff. So maybe it's time to go back and just say, hey, this house been working during covid. This is what the plan I want, you know, like 5050, and easy rotation that we've been doing. But it wasn't seen that way. It was seen she's still too young, even though she was a sixth grader, and they thought the half hour drive was too much, getting her up early in the morning, even though she gets up the same time at the mom. So it was very confusing, frustrating. So I was like, Well, I guess it's just not in my it's not on the cards for me to get 5050, so then we settled on summertime only and ran back the old schedule during the school year. So yeah, 100% didn't want that. I was just, it's all about time for me, like it was all about I just wanted time with my daughter. I didn't care about child support. I didn't care about any of the other stuff. It was all about time, you know, and when that didn't happen, it it was definitely
Scott Benner 13:23
frustrating. Yeah, okay, do you have kids with your new wife? No, no. Four dogs, though, four dogs and then, and then your daughter comes half time in the summer. And the way you just described it, okay, your intake is pretty simple, right? You're just, you know, here, I'll read it to you, because you probably wrote it a long time ago, and you might not even remember. Let's see co parenting, a type one with an ex wife, from a mom dad perspective, more contentious relationships than I've heard other divorced parents talk about when they were interviewed, and now I've taken the lead on diabetes care. So first, first, like when care is being set up initially, and that's, you know, that's the setup. She's there, then she's back, and she's forth. I mean, it's hard enough. You don't have this experience, but a lot of us do. It's hard enough coming to consensus when you live together and you're not divorced, on how to take care of diabetes. So what ends up happening do, does one of you come up with a way you do it? The other one does it a different way? Do you come together and make a decision like, how does that all work? About management, the brand new twist insulin pump offers peace of mind with unmatched personalization and allows you to target a glucose level as low as 87 there are more reasons why you might be interested in checking out twist. But just in case that one got you twist.com/juicebox. That's twist with two eyes.com/juicebox. You can target glucose levels between 87 and 180 it's completely up to you. In addition to precision, insulin. Delivery that's made possible by twist design. Twist also offers you the ability to edit your carb entries even after you've bolused. This gives the twist loop algorithm the best information to make its decisions with, and the twist loop algorithm lives on the pump, so you don't have to stay next to your phone for it to do its job. Twist is now available in select areas. So if you'd like to learn more or get on the wait list, go to twist.com/juicebox. That's twist with two eyes.com/juicebox. Get on the twist wait list and be notified as soon as it's available in your area. Links in the show notes. Links at Juicebox podcast.com. The contour next gen blood glucose meter is sponsoring this episode of The Juicebox podcast, and it's entirely possible that it is less expensive in cash than you're paying right now for your meter through your insurance company. That's right. If you go to my link, contour next.com/juicebox you're going to find links to Walmart, Amazon, Walgreen, CVS, Rite, aid, Kroger and Meijer. You could be paying more right now through your insurance for your test strips in meter than you would pay through my link for the contour next gen and contour next test strips in cash. What am I saying? My link may be cheaper out of your pocket than you're paying right now, even with your insurance. And I don't know what meter you have right now. I can't say that, but what I can say for sure is that the contour next gen meter is accurate. It is reliable, and it is the meter that we've been using for years. Contour next.com/juicebox and if you already have a contour meter and you're buying test strips, doing so through the Juicebox podcast link will help to support the show.
"Mike" 16:49
Good questions, for sure. And I would say, when this first happened, I was kind of hopeful that maybe this would be the turning point that would bring both sides together, you know, and bury the past things like that. And it did in the hospital for the first couple days when we were going through that, all that education. But then as soon as not as soon, but once, you got back home and things started to settle down, things kind of returned to what they were. So I would say two different people, and the worst thing that could have happened when we're in the hospital those initial days and getting all the information the doctor or one of the nurses like when they're going through stuff and they're talking about how to best manage diabetes and with insulin, and having her be a normal kid. And so then that's what we want for all the children. Want them to be normal. But they they said something that my ex took to heart, and still to this day, feed her whatever she wants. Give her whatever she wants. Just manage it with insulin. Everything will be fine. And it's just there's so much more that goes into it at that they didn't talk about, like, you know what we've heard from episodes from you, 15 minute dosage, and then start eating after, let things catch up, glycemic indexes, cookbooks, we're going through things like that, like we did a lot of research our side and the other side, just that mantra of, nope, whatever she needs, whatever she wants, will be solved with insulin only. That's just, there's so much more that goes into it, you know, carb counting and making sure you're correct and and not getting it wrong. So it's just two different schools of thought, you know, like my wife and I, we plan a lot of the meals and think what's going to go into it and and kind of how to keep her in a good range and not just go create. And of course, like we're not saying, like, you know, she can't do this, can't do that, but we try to be ahead of it. We try to think about what's going into her body. And she's an athlete too. So that's a whole other thing we could talk about probably after but we didn't come together like I thought we would. And to this day, it's still not, it's not the same management. So for my daughter, who already is coming from a divorce household and has to probably be two different probably be two different people in two different places. Now you have the diagnosis, now you have the management on top of it, of not the same school of thought in both houses, and it's just I feel for her, you know what I mean? No,
Scott Benner 18:51
because I'm assuming her blood sugars are more stable and less variable with you than they are at with her mom. Correct? Okay, so let's take on that for a second. So they do that thing, where they go, Hey, don't worry, this isn't gonna change your life. You just count the carbs and put in the insulin and great, that's a good starting point. There's a lot more to be said after that, but your ex just hears that and says, That's the rule. The book is closed at that point, okay? And if the blood sugar goes to 300 and stays there for two hours, as long as it comes back down, it's okay, that kind of stuff. Yep, yeah. I actually heard somebody say it's interesting watching the Facebook group, and there's a person there who's like, Hey, I'm, you know, I'm trying to figure out this spike at a meal, this pretty vicious spike went up real quickly, you know, came back down, etc, and this one person jumps on and it's like, Oh, that's okay, as long as it comes back down. And I went and looked, and I was like, Oh, this person's kids had diabetes for three months. Like, that's what they heard, you know, at the hospital. And now it's funny, because somebody steps in Facebook groups, very nice. It's not like people jump on her, but somebody steps in. And says, Hey, actually, you know, there's ways to do this where that spike doesn't happen, you don't get low later. There's a little conversation around it. And it's funny, because I thought she thought she was there to let that lady know, no, that Spike's fine, and she's about to learn instead. And that's kind of how that whole thing works. But your wife's not interested in that conversation, or she not interested in it because it was coming from you? Do you have a feeling for which it is? Today's episode is sponsored by Medtronic diabetes, who is making life with diabetes easier with the mini med 780 G system. The mini med 780 G automated insulin delivery system anticipates, adjusts and corrects every five minutes. Real world results show people achieving up to 80% time and range with recommended settings without increasing lows. But of course, Individual results may vary. The 780 G works around the clock, so you can focus on what matters. Have you heard about Medtronic extended infusion set? It's the first and only infusion set labeled for up to a seven day wear. This feature is repeatedly asked for, and Medtronic has delivered. 97% of people using the 780 G reported that they could manage their diabetes without major disruptions of sleep. They felt more free to eat what they wanted, and they felt less stress with fewer alarms and alerts you can't beat that. Learn more about how you can spend less time and effort managing your diabetes by visiting Medtronic diabetes.com/juicebox
"Mike" 21:30
I think that, I think you had hit the head of the nail on that too. I'm sure, I'm sure that has a lot to do with it. Because, like I said, before you and I came on, we were just chatting. I said, you know, I talked about a couple episodes that might be good for her to listen to, and just suggested it. And, you know, I was kind of met with, kind of too busy to to listen to that type of stuff. We're good. We're good over here, you know. And for me, I was just trying to get any resource I could. And my wife, she's been like a rock star too, like she is. We're so supportive, and she does a lot of research. And she's, she's definitely my right, right hand woman and and so supportive and helpful with all this great to bounce ideas off of and stuff like that. So and she's great with meals. She's great with planning. We're on that. We're definitely on the same page. So it's great to have that here. Let's
Scott Benner 22:14
be fair to your ex. She does. She work at the United Nations. She trying to broker a priest in Iran right now. Like, Is she very busy. No, not any more busy than regular person. Yeah, she's not a trial lawyer or something like that. Not like a big like, 20 hour a day job. Nope, definitely not. Gotcha? Okay, it's probably somewhere between I don't listen when dummy talks, and this is easier if I just ignore what's happening to her blood sugar, and I can lean on the doctor said this was okay, then I don't have to think about this
"Mike" 22:44
anymore. Yeah, yeah, yeah, that's probably right. I have
Scott Benner 22:48
to tell you the number of people I've spoken to who have that opinion. They're not malicious, though. I don't think anyone sits around looks at those blood sugars and says, I know this is killing my kid, but it's easier. And the doctor said it was okay. So I'll just ignore the fact that this is not great. Now, maybe there are some people out there doing that. I don't know that would be. That would be something for them to talk about with a therapist. It's very interesting, isn't it? So, I mean, you're both in that same room, right? Like in the hospital, so how do you come away with a different idea than she came away with? Yeah, I mean, like you said, 100%
"Mike" 23:21
it's not personal. She cares about our daughter a lot, yeah, but I just think it's, it's a different kind of care. It's I, I'm more of the warrior, where she's more of the kind of laid back, like everything you know, things will find, things will work out. I think it's like that thing where it's the highs versus the lows, right? Like, where they say the the highs could kill you over time. The lows could kill you
Scott Benner 23:41
right now immediately. The idea you want to die now or later, that kind of thing. Yeah.
"Mike" 23:47
I think what happens is she's more concerned about the lows end of sentence. I'm just as concerned about the lows and the highs equally. Yeah, so if
Scott Benner 23:55
you guys didn't get certainly don't want to make you feel bad. I don't think you will. It sounds like you've had quite a little adventure. But um, so if you guys weren't divorced and this happened, you probably would have balanced each other out to some point. Yeah,
"Mike" 24:06
yeah. I think it would have been, I think would have been the same or living in the same house. It would have been different schools of thought. But like you said, would to be balanced. And I think, like you said, she would listen to dummy right a little bit,
Scott Benner 24:18
or at least it would probably be one of those situations where you're like, she's like, she's like, it's fine. You're like, you know what? I'm just gonna put a Bolus in here. Yeah. And she probably at some point would be like, Hey, listen, he's taking care of it. I'll just back up a little bit. Or maybe that would have led you to get divorced. Who knows, maybe you would have been in a mediators office and she would have been like, he is too focused on my daughter's diabetes. The doctor said it's fine, but he says it's not. And he's, you know, he's, I don't know, you know what I mean, like, you know, you might have been in there doing the same thing. You might have been like, Listen, this is very important, but she doesn't seem to care about it or understand why. And, man, it's interesting, because I think this happens to a lot of people, and then it settles into something. And definitely changes their relationship afterwards. So for you, I'm hearing you talk about, like, it's about my time with my daughter, and when I know that your motivation, just for your relationship, if I apply the kind of person I feel like you are, to the diabetes thing, my biggest heartbreak here, besides for your daughter, who I do wanna talk about, what happens when care changes, like drastically, like day to day or week to week. But my biggest like, heartbreak here for you is that I'm imagining your daughter not with you for five days in a row while her blood sugars are crazy, and there's nothing I imagine you can do about it.
"Mike" 25:34
Yeah. I mean, original reason why I wanted to come on an episode with you, and thank you for all that you do for this community, by the way, and what you've been doing for so long. I mean, so long. I mean, God, this is a godsend to find you. But what I wanted to do is back like it was an episode in November I was listening to and and a lot, and I don't listen to every episode. Obviously, there's such a great catalog, and for people out there, please listen to as much as you can. But I found, like the episodes I was coming across, I heard, you know, things about divorced parents or just separate parents, whatever, but different households, and it seemed like a lot of the time that the mom was the one that seemed a little bit more responsible, and the dad was kind of like, you know, along for the ride. Yeah, when we're at dad's like, anything goes, same thing, fun time. And, you know, blood sugars not held in check and unreachable, you know, like won't pick up the phone. I'm worried this, that and, and that's not the downplay. Those are all real concerns. But what made me want to come on originally was I'm not going to be all mailed this, mailed out, but I just want to be a voice for dads, dads and divorce or dads that are doing a good job out there as CO parents or caregivers, but even the more I listened to the more I thought about coming on today. It's not only just for like dads and trying to be a voice for dads, but for any divorced co parenting situation. It's just being on the same page and knowing that your ex does care about your child as much as you do. Could show it in different ways, but I think you hit it on the head a few minutes ago when you said about gutta under control. I think some of the things with my ex could be she knows that even when my daughter's not with me, I'm always watching on Dexcom. And now that my daughter's older, like we text a lot more than when she was first diagnosed. And I think I do handle it even when I'm not there, like my daughter knows that I'm always available to text, and she does a good amount of that, even when she's not my care. And I think, yeah, when she's with me and she's down the hall, I can sleep, sleep like a baby, except when the Dexcom alarms go off, then we're popping up like everybody does, okay, what's going on? Yeah, but the times that concern me the most, and when I'm most frightened and scared are you said it when she's not with me, when she's not my house, and I would say, Over these years, and this isn't being dramatic, but there's no pat on the back here. It sucks to have to say this, but there's four different times that blood sugar is going low, all right? It's not coming up, not coming up, and it's late at night, right? It's midnight or later. What do I do? She's not with me? Try, like, pinging her phone. Try calling her phone. She's not picking up. My daughter's a decently deep sleeper. Yeah, and then it's like, all right, gotta call the ex, because nothing's happening. And all four times totally asleep, totally out of it. Do you see what's going on? Know what's going on? You see it's in the 40s. Do you see it's dropping closer to the 30s? Like, what's happening? Like, are you up there? No, can you get up there? And then thinking to myself, like, what do I do if she doesn't pick up? Do I call the police to be like, This is the address? Like, sitting there, like, 12, one, two in the morning, kind of losing my mind. Like, do I really want to make this call? I can't just let her die. Like, this is wild, you know, but I've had to do that four different time. And then enough's enough. One of these episodes we heard about the sugar pixel. I'm like, there we go. That's happening. And knock on wood, we've had that for, I would say, a year and a half now, and I haven't had to make, like, one of those calls since you bought it for your daughter. You bought it for your ex. We'll say for my daughter. Okay,
Scott Benner 28:56
gotcha, honey, take this to your mom's put it in her room. Okay, not your room again. That's one of those things that without the divorce, the story is just, oh, my wife's a real heavy sleeper, but I hear the alarms, oh yeah, and I hear it too, how difficult the idea is. Like, like, did you ever have to call emergency services or No, no, thank God, no, right? Because it unlocks a Pandora box after that, right? He called the cops on me. Like, this happened? Like, maybe, maybe she's back at the lawyer now, like, you don't know what's gonna happen, right? Like, it's a Pandora's box you do not want to open. You're just like, but at the same time, what's the alternative? Is my daughter gonna, like, have a seizure, right? Now? Like, am I gonna wake her up in time? Maybe night? This is not a thing that doesn't happen, it does happen so, you know, and you know, 40 blood sugar that's falling you're also counting on, hoping the Dexcom is actually right, right, could already be lower than that.
"Mike" 29:51
Totally. Yes. I mean that that is a great point as well. Yeah, totally. And when you
Scott Benner 29:56
have that conversation, I love that you called her the ex, when you have that conversation. Him with the ex. Does she hear it, feel it, put it into practice, or just go, Ah, it worked out.
"Mike" 30:06
It's one of those things where we meaning, like a team effort. We had it under control and, and things are good now. I'm not looking for a thank you, you know. I mean, like, Thank you for calling, you know? But it's just a, yeah, we're all good and, and stuff like that. And it was just a situation recently, actually, where they were somewhere else. There's a whole other issue. My daughter plays basketball, and they're at like, a tournament for the weekend, and the hotel they were staying at lost power, and we've been having a big problem with now that she's a teen, and charging phones. So of course, wouldn't you know the phone was at like, 30% battery life. It's again, like 11 o'clock at night at this hotel, they don't have a backup generator there. What kind of hotels is just for the hallways, but not for the rooms? So where you gonna charge? Where you gonna the ex is staying at a different hotel down the road that had power, and it was just one of those things where going together, coming with you, doesn't want to leave. The teammates don't care about that. You know it needs to get charged. Like, we all know that her phone battery is everything with Dexcom or otherwise, yeah, well, so we have Dexcom and omnipot, like, why do we have these devices if the phone's gonna go dead? So she knew to go get her, and my daughter wasn't happy to leave the friends. But it's one of these things where, unfortunately, this diagnosis is something you have to take seriously, and you're you aren't on the same path as all your friends. Unfortunately, when it comes to something like that, if you were a non T, 1d kid and your phone's about to die, that's not cool. But I mean situation that we have to monitor either because you're not a diabetic. So for a diversary bottle, like a portable charger. This is things like that. You're always, you always have to think ahead, right? And I was not thinking about a scenario like that, happening in a hotel, not having power, her being at 30% want to go to bed with everybody else, and the thing would just die overnight, probably so, well,
Scott Benner 31:53
you'd be Kreskin if you thought of that. Like, you know what I mean? Like, that's, you know, there's a tournament we go for a thing. The kids are in one hotel. My mom's in. The other loses power, but she didn't plug her phone. I mean, Jesus, if you could have figured that out before it happened, I would have called you for stock tips.
"Mike" 32:07
I think it's just one of these things too, where, you know, as we say in this community, you know, like every day is different. We could have the same meal every day, same time, and tomorrow could be totally different from today, and expect the unexpected. And I think what I've learned from this prior to this diagnosis, I was one of these guys, not just with diabetes, but with anything if it doesn't pertain to me, if it doesn't pertain to my life or someone in my life, I hear the word, I hear the term, I see the commercials, but I don't think it doesn't impact me. Something about it now, since the diagnosis, it's like, Yeah, I hear that word, I hear diabetes, and I'm on it, and I think it's one of those things too, where, like you said, you can't game plan, but I respect the hell out of diabetes. And I think if people don't, then I think that's a major misstep like this. This is something that you have to give it respect, and having those realistic conversations. I I just had the Noah gray episode you had was awesome. I'm glad you like that. You know, we're from the northeast, so we knew of the person. What a great episode. And I think listening through that, it helped me have some conversations with my daughter, and I even had her listen to the episode. I think the diabetes community, like, has he, as he mentioned, we're a smaller community. We're growing, but we're small. You definitely feel alone sometimes, like I don't have a lot of people to talk to about diabetes, and, um, my daughter, my daughter doesn't either, but she does go to this camp every summer, and then she's going for two weeks this year. She's done for the last three, three years, and she's made some friends, and can talk to some people even when they're not at camp. Oh, there's several diabetics, and I think it's really therapeutic and helpful for her. I like when you had, like, a guest on like that that made a good impact and had a lot of great things to say, because after listening to episode, I did have some conversations with my daughter and the hard ones, right? And we reviewed some of those overnights. Do you remember that? Do you remember pre sugar pixel? Do you know what could have happened? You know? And it's like I just would have fallen asleep. No, you would have fallen asleep forever, like she didn't realize that I could have passed out. You may have passed out and never woken up, right? Geez, you're 14 years old. You don't realize that if your blood sugar continues to go down, like you can die. I
Scott Benner 34:08
know. How would she know? You don't know about mesothelioma. I'm sorry. I mean, I tried to yank out one of those diseases I heard on a commercial. I don't know how to pronounce it. You made that point earlier, like I hear things and I don't know what they are. And I thought, oh, like mesothelioma. I don't know what that is. I think it's cancer, yeah. How would she know that? I mean, I've told that story from a decade ago where I was talking to a friend of mine. They had Bolus their kid for food, and then she had to run with, like, the third kid to something, and looks to the oldest kid and says, Hey, you know, make sure he eats, because he's got all of his insulin. And and then the mom leaves with one of the kids, take her somewhere, and but then the kid don't want to eat, and the older brother just is like, man, you gotta eat that or you're gonna die. And the kid didn't had no context for that, so like no one had ever explained that to him, he was pretty young still. And when the mom gets back, the kid. Kids, like, on the floor crying, like, What do you mean? I can die? And I was like, Oh yeah, there's another hard conversation you have to have with your kids when they have diabetes, like, and when the hell's the right time to do that, you know? At what age do you explain that part to them? You know? And so I don't know that. I don't know if there's a right time or, I mean, how you're supposed to plan any of that out. I just figure it comes up at some point. And you know, you go through it, man, the whole thing's hard, but you're saying now that tell me her age again, right now,
"Mike" 35:30
1414, almost, almost 15. You
Scott Benner 35:33
guys are basically managing through text. 24/7, doesn't really matter, matter where she is,
"Mike" 35:39
yeah, and she's starting to take on some more ownership, which, which, that's what I want to honestly and, and I think talking to parents, divorced parents, or dads, or whoever's going to be, you know, maybe feeling this episode, I would say, maybe I waited too long, you know, it's been four years, but she was younger, you know, 10, whatever. But now it's to the point where, yes, I think to have the most success to try to have both houses be on the same page, regardless of the parents, 100% I think, is getting your son or daughter on board with a plan that works for them, that they could replicate at both houses. And maybe we're doing a little more practice at our house, so that way, when she's not at our house, she'll be doing things for herself with the other house, and it'll be more in line with what we want. And I would say that now that she's older and she wants that too. I mean, you know, she definitely wants to feel good, and doesn't like the highs, scared of the lows, you know, so, and it's funny now, through text, even when she's in the house, she'll go low. And usually I overdo it, right? I'll be like, do a prick. Make sure your Dexcom is right. Get a juice ready. This is, you know, all this stuff now is, don't worry, have a juice. Don't worry. I've threw activity mode on. I'm doing a perk net, so it's starting to see that now, awesome. And it's, and it's just like, Oh, awesome, you know, like, this is, this is the, this is the good stuff. Now, you know,
Scott Benner 36:59
do you think there was a time where, like, your ex wife, did she see like, I guess my question is, when your daughter was with you and you had lower stable blood sugars, more stable blood sugars? Do you think your wife, your ex wife, was panicking, like, Oh my God, look how low she is. There's gonna be a problem. Or do you think she saw it as stability? It was
"Mike" 37:17
like, one time she reached out, but I was like, I got under control. And I think as the years have gone by. It's one of those things where when she's not in her care, times off when she is in her care, she thinks about it when she's not there. I would say that's accurate. And I would also say, even when we're at events where we have to be at events like together, like CO joined, I would even say that would be the case, as I mentioned, like my daughter plays sports, even when we're at those games and stuff like, I'll be, I feel that I'm monitoring the phone a lot more, where her blood sugar's at, like, while she's playing come kind of like her eyes, like when she's playing, and when she comes for timeouts, you know, I'll send little texts of, watch this drop, watch that I just I want to go out there and play, have fun. Two opponents, right? Two opponents she has to gear up for every time she she steps on the court who she's playing against, and diabetes, you know, and everybody else has the one opponent, and I think, yeah, go have fun. Don't worry about it. Just be you go and do the thing you love to do. I'll be watching. I'll text you. We have a good system. Come for a timeout. You get subbed out, checking the phone this that All right, give a little more going active. But with her, we found that when she competes, man, does she spike, you know? I mean, it's we want her in like, the low 80s going into a game, because even if we do nothing, we found that she's almost goes up like 100 blood sugar points, like, during a game, if, if left untreated. So, oh, we're starting the game at 80. Well before you know, it shit up to a 180 and rising, you know? And then we have to interview. But we don't wait that long anymore, obviously. But it was just funny, just Oh, interesting to see level of competition stress, you know, just all that stuff, what it would do. But that's what we figured out we were we have a pretty good system. She's able to go out there and do what she likes to do. She's a basketball player. She will go out there and do what she loves to do, and we do it pretty well now, unless the pod fails or something crazy, which has had, has happened during games. And she hates sitting out, but, man, she does battle, though, and she she loves to play. So it's, it's great to see her doing her thing, whatever. And that's for other people too. Whatever your son or daughter's thing is. When you get to sit back and see them doing what they love to do, it's just great. And but for me, it's one eye on the court, one eye on the phone. I'm not on the phone, 24/7 but I'm watching I'm watching it a good deal, so I can't 100% enjoy these games, the stress of being a parent, hoping your kid does well, but then also managing diabetes as well. But I would say the ex definitely doesn't have the eye on the phone like I do, because there'll be times where things are going on and I'm already five steps ahead and already have multiple texts with our daughter, and then maybe it'll be like, Hey, do you notice this reading? And I'm like, yep, you know, but that's not every game that's like, you know, once every now and then. It's just kind of like, yeah, every game I am on this it's not like a, you know, every now and then thing,
Scott Benner 39:54
yeah, okay. How do you see the future going? She's, you know, not quite in high school. School, right? The
"Mike" 40:01
future be great. So she's just finished her freshman year of high school, okay? Future, I want her to continue to get more independence for her own care, and I think that's gonna help again by going to the summer camp. She's gone for like, two weeks this year instead, like, won the past, and she loves it, and she comes off those camps and is way more knowledgeable and, like, into it at that point. So I think just reinforcing that, and I think continuing, I want to take a step. Thank you. One of these episodes, someone had said about being like a passenger, I definitely want to transition into like that passenger mode. I told her the other day, hey, look, this summer, let's set some goals, not just for diabetes, but for plenty of things, school, work, working out. You know, basketball, diabetes care, you know, cooking stuff around the house, sure, you know, all these different things I said, I want you to take the lead more with your care. I want you to be Bolus when you think you need to. I want you to be counting carbs for these meals. I'm there to support you, and I'm going to back you up. And I will if you're making some wrong math, kind of, you know, calculations just that, not just going to let you go and fail, but I kind of want to transition here, you know, I think, I think the ex already has, which I think that's why some of the all over the place, but I think she's been trying to do stuff, and maybe she's not doing it well, like her own calculation. So I kind of want to take a step back this summer. Yeah, I want her to be doing a lot more for herself. Like, I can't be there always I will, but I can't thought of college someday right now makes me really worried. And I know that a lot of parents and a lot of episodes have addressed that, but yeah, I think just being away wherever that's going to be, it's going to be a great disservice to her, if these next three years aren't spent with her, really trying to get a control of this more for herself when she is by herself, you know. But yeah, I definitely want more independence for her and more success when it comes to managing blood sugar. Do you
Scott Benner 41:42
think you'll have any trouble separating, like letting go in some spots, or do you think you'll welcome it? I
"Mike" 41:48
think if I do it right these next three years, when she's still in the house, I think I'll feel a lot better. And I think the funny thing about that question too, is I thought about that before. I think I'm gonna be a nervous wreck in college anyways, I'll feel a little bit better having Why did divorce prepare me? Divorce is prepares me for not being with her half the time. So I think when she goes off to college, I'm going to already kind of be used to her not being into my roof. 24/7, yeah, so I'm hopeful that I'm going to feel a little bit more ready for when she's not with me, because she's not with me all the time. Anyways, that's that's least what I'm going to tell myself right now. That's what
Scott Benner 42:20
I'm going to tell myself right now. You have some hard fought lessons there about life and change. I think you you sound like you're pretty good at it, even though you don't feel like maybe the your ex wife is putting in the same kind of effort that you are or trying to understand things I also have not heard, unless you're holding back. I have not heard you know that she's attacking you or trying to stop you from managing the way you do, or anything like that. Like she's like, seems like she's let you be who you are in this situation. Is that true?
"Mike" 42:49
Definitely not an ex bashing episode, for sure. I mean, no, she knows I'm a good parent, and she trusts how much I love our daughter, and the blood sugar levels, I think, the the care that I provide when she's with me. I think it speaks to itself, and there's not a lot to probably critique. And I think because we manage differently, and maybe because of because my wife and a lot of conversations we've had, I think that maybe we're just, we're two different camps. So I think I don't want to say this and like, be mean, but I think I'm just, like, a little bit more knowledgeable about diabetes, and, like, the finer points and where I think I know a lot more about the disease, and maybe it's because of the other side being busy, or other things going on in life, or or she knows enough that she knows the basic things that she needs to know to make herself feel comfortable when her daughter's in her care and doesn't feel the need to Go the extra mile and maybe do, like, more research. I mean, that her own thing, that's fine.
Scott Benner 43:45
Does she have other children? She does. She does, right? Like so,
"Mike" 43:49
yeah. So, I mean, so you're not 100% I get to be 100% focused on our daughter when she's with me, but the other side has other children too. So I mean, and I can't pretend to know what that's like. So if I wasn't 100% focused on just like my daughter, only I imagine that there'd be things pulling me away too. So I'm just fortunate to have had just my daughter to be concerned about.
Scott Benner 44:10
Let me tell you something from a person who has two kids, sometimes when one of them leaves, you're like, Oh, good, there's like, a thing I don't have to think about right now. And at the same time, I'm always reminded of this thing I thought about my little brother, which is unfair now, because he's in his 40s, and he's a very good person. But when my little brother Rob was little, there were two states of Rob. Rob was either in trouble actively and you were aware of it, or Rob was in trouble and nobody had found out about it yet. I relate that to Arden going off to college. And you know, she's like, Oh, I can take care of this. And like, and she does. And then, you know, a month goes by and you're like, Oh, this is going well. And, you know, two months goes by, I guess it's going well, and a year goes by, and like, you know, some days you don't think about her at all, like she's just gone, you know, you realize. And hein. Site, something was happening that needed attention, that she didn't put attention to because she was away at college, and she's not 50 years old, and she doesn't, you know, she's not a parent. She's not thinking of herself the way I think of her, you know, way My wife thinks of her. So you realize that you don't know how to put it like you're getting a break, but there is just something else that's brewing right now that you're gonna have to deal with later. And I don't know if that sounds I don't know how that sounds exactly, but that's how I've tended to think about it. Like, yes, I'm getting a break now, but man, something's gonna happen later, and it's gonna be because I wasn't looking now. Now they're gonna be people who hear that and go like, Oh, that's neurotic. But I don't mean it that way. I don't mean like, I know there's problems and I'm not seeing them. I mean that something's always brewing, and eventually it comes to a head. And, you know, could you have stopped it if you were around? Probably not. Like, you know what I mean? Like, probably not. But it does give you that feeling of like, oh, at least I don't have to think about it right now. Like, somebody else is keeping her alive right now. It's not me Sure, yeah, man, I hear it. Do you think you'll have more children? Or do you think this is
"Mike" 46:06
good for you? My wife and I would definitely want to have more children. For sure, we'll see what the future holds within the cards. Yeah, like, whatever happens, happens. I love being a dad, and it's the best role ever, you know. And I've been really fortunate to have a great kid. And I just love this role so much. And I think for all the dads out there that feel the same way, you know, just continue, continue to love your kids, you know, and continue to work hard with adjusting to type one. And like you said, I mean, we can never see things coming. And I think getting back to the Getting back to the other side the X thing, I think individually, we've both done the best that we could do. She's done good care, in her eyes. For our daughter, I've done good care, and why I thought, definitely don't want to bash because, like you said, still alive. Knock on wood, never had to return to the hospital since before. You know nothing like that's never gotten to that point. So I think we're fortunate. I think I've chosen on my time when my daughter's not around, I've chosen to stay vigilant. I definitely could have turned Dexcom off if I wanted to and do it, but I don't know, there's something within me about being a parent and just like loving this kid so much and and when she's not with you, I don't know. It's just, I don't know. I just don't have it with me, I guess, to turn it off fully. But I guess that could just be me. You know
Scott Benner 47:18
could be Hey, do you have any past trauma? Did you grow up in a way that nobody took care of you? No, no,
"Mike" 47:24
no, definitely not. I had great parents. Not had, well, my dad passed away 25 years ago now, but, and that's where I got the whole like, wanting to be a dad from him, he was just like, this awesome dad growing up, modeled all these things for me, just my biggest cheerleader. My mom was there too, like not but just because he's not around anymore, but biggest cheerleader connected through sports. Always, always there. Funny, you know, just could feel the love like was put on this earth to be a dad. And I think when I first got divorced and was trying to make sense of all that, I remember saying to myself, and I stand by this to this day, I remember thinking, You know what? I was meant to be, a father, but not necessarily a
Scott Benner 48:07
husband. I was gonna ask you, I don't know if it's the two person or not, but like, who told who they wanted
"Mike" 48:12
to get divorced. It was mutual in the end, but she definitely did initially.
Scott Benner 48:15
Was it something that surprised you when you heard it the first time? Or did you understand
"Mike" 48:20
I kind of saw it coming. I saw, like, some signs, probably two, three months before it happened,
Scott Benner 48:26
because of she didn't particularly appreciate you, or because she had something else going on that she was interested in. I
"Mike" 48:33
think it was one of these things where maybe it goes to that statement I said about put on here to be a dad, not necessarily the husband, meaning, like, a lot of my attention went to our daughter, and maybe not as much She was jealous. You think, I mean, it was, like, comments made about things I wasn't, like, saying or doing to, like, put her up on a pedestal anymore. But it's one of those things where it's, Hey, I'm in it with you. Like, raising a baby, you know. So
Scott Benner 48:59
I'm putting effort into the into the family, into the baby. Now, hey, she would not like being a straight guy that once you get pregnant, because my wife was like, Oh yeah, hold this while me and the kid are living and I was like, oh okay, God, yeah, I see getting my wife pregnant turned me from my wife's boyfriend to my son's major domo. Nevertheless, if you don't mind, I'd like to dig back into the diabetes stuff for a second. I do wanna understand, can you explain an average graph with your daughter living with your ex and your daughter living with you? Like, I wanna understand how much difference there was between because that's difficult, right? If she's spiking to 300 and staying up there for two hours and crashing back down, and they're catching lows and like, she's up, down, up, down, up down, with one house, and on the other house, she's stable. I don't think there's any doubt she feels better in one of those situations. Like, was it that variable?
"Mike" 49:52
Yeah, I mean, it's, it's those things where you could be down, you could be down, like in the 60s. And then, yeah, up, then over treating. And then you're up in, like, the 240s you know, and rising things like that. There's a lot of, like, up down. There's a lot of peaks and valleys when she's with the other side with us, because of a lot of your episodes, because of,
Scott Benner 50:14
you know, just understanding how to use
"Mike" 50:16
insulin, understanding, like, how to be confident and cold with insulin, things like that. You know, not afraid to get ahead of these eyes that are starting to go up and realize, like, Hey, if you come down, then we have a plan in place. But definitely, I can't stand when you're up in the two hundreds or because you once you're there, you know, you're there for hours, and it's just, God, that's just miserable. And she must feel miserable. She'll try to say like, oh, you know, it is what it is like, Oh, I feel like I might have a headache, or I might just that, or she downplays it, but she must feel awful. And I would love her to be, you know, for me, like, if it, if she could, like, live in, I would say mid 80s to say, like, 120 something like that. I mean, no, that's unrealistic. But if you could, like, be there a lot, which I feel like she's close to that when she's with us, because we're we're hitting things off. Like, I don't want we have the thing set for like 200 but I haven't moved mine down to like 180 like, I don't even want it, and that's still too high, but it's just she hates hearing the neat, the noises, because I've talked to her about that before, like, hey, why don't you lower your stuff on Dexcom so we can hit a little bit earlier. But I think it's part embarrassment too. Like when she's in school, she doesn't want to be center of attention. She doesn't want people looking around. There's a funny story, there's a funny story, though. Actually, it was last year, and she transferred to a new school, so not everybody knew that she was a diabetic, and she did a good job, like, kind of telling people she needed to, but kind of kept it to herself from other people. And it was towards the end of the school year, and she does really good about not wanting that alarm to go off in school, but one day it beeped like crazy, and the teacher went running over and picked up the phone. Thought it was like, the phone ringing, and some other classmates, like, knew what was going on, and they kind of looked at her, and people started to giggle a little bit. And the teacher had no idea what was going on, but my daughter thought was the funniest thing, like she was dying laughing, because then the teacher went next door and said, was that your phone or mine? And then people are just starting to, like, roll in the classroom. You know, you never said anything, but she just doesn't want to stand out, you know? And I think that's part of the thing, where it troubles me sometimes, or I'm left clueless, where you don't want to stand out. You don't want alarms going off. You want people to to know, like, what's going on. You want to kind of handle in house, but, you know, why not set your alarms a little bit lower? Why not get ahead of it so that way you're not up high? Not up high? Why are you on board with it when you're with us, like you're proud and you like, we don't want to put all the attention on diabetes. 20% you're more than diabetic, right? But, but she is proud on those days where things are really controlled well, whether it's with me or or with the ex or whatever, but she's proud, and she'll say, like, Oh my God. Like, I haven't been out of range, or I haven't been high or low for X amount of hours or for a day and a half. So she wants that. But then when she's with me, we take steps to try to make that happen. When she's killed her mom's I feel like, sometimes I feel like it's like men in black, you know, it's like, you just forget everything, just because you're in a different house, you know? And why you okay with it being in, like, the 240s 250s approaching 300 like you don't want that for yourself, so why? Oh, I just made a miscalculation. Or, Oh, it's fine. It'll come down like that sounds like, not your words.
Scott Benner 53:08
She kind of adopts the person's Yes, like vibe that she's with at the time, chameleon, yeah, well, yeah. And probably trying to make you, well, listen, she's probably trying to make you happy and trying to make her mom happy at
"Mike" 53:19
the same time, exactly. And yes, that's a that's a great point, right? Yeah, I would start looking for a therapist.
Scott Benner 53:27
Now, I'll tell you, man, being being from a divorced family is not easy. It just, it really isn't, probably most people's reality, but it brings things up. You just, I don't know. You just, you don't realize till they're happening. And sometimes you don't realize till they're happening too late, even just talking with Arden yesterday, I was trying to explain to her. I said, Look, I know this is such a weird thing that people say all the time, and I hate it when people say it, but if you had a kid, you'd know what I was saying, and one day you might, and then you're gonna look back on this moment and think, Oh, this is what he was talking about, right? And I said, But you know, if I don't do something, listen, Arden and I are, it's funny. We're in the middle of a divorce of sorts too, right? Like we're uncoupling a child with diabetes father relationship and turning it into an adult with diabetes father relationship. And it doesn't happen overnight. It's not like a thing that just happens, you know, because you flip a switch, or you decide it's a process, and we're making our way through it, and that's, you know, I think it's going pretty well. Actually, I'm sure she thinks it's going terribly and because it's not happening more immediately. But we were talking about, like, how much involvement like to have, and how that involvement as she gets older feels differently to her, like it's just what's happening. Like, listen, I've interviewed enough young people. I understand the process that we're in right now. And I said to her, Listen, if you say I'm fine, I've got it and you've got it, that's awesome, because I'm not looking to think about this either. I. Know, you probably think that I'm super excited to talk about your diabetes. I'm really not. And I said I'd like us to move into a more mature relationship as fast as possible. I said, I told her I was like, you and I have, like, the same personality, like, when we just hanging out together, we have a great time. I'm like, I want more of that. I want more of an adult relationship and adult father daughter relationship. And I don't wanna talk about this diabetes stuff all the time either, and by the way, we don't, but the spot where we talk about it is when she says, I'm fine, I've got it, and then doesn't do the things that indicate she's fine, she's got it. And I'm like, so how long am I supposed to not say anything. If you say I've got it, I've got it, I've got it, but whatever you're doing is not working. And I know the simple answer, like, as an example, the other night, her pod ran out of insulin while she was at, like, working out. So she, you know, she came home. I think she was probably only without insulin for like, 20 minutes. She came home, she changed her bike. She didn't need me to tell her. She came home, she changed her pod, she put it on and, you know, she made a Bolus and everything, but then she ate a little like, pretty soon after that. Excuse me, pretty soon after that. Oh, by the way, it's good news that my voice is giving up on Thursday when the cruise is, uh, on Monday. I'm sure I'll be great by the next the next week of talking to people for five days in a row, I just realized it wasn't an aggressive of enough Bolus on the new pod, especially if she was going to eat afterwards. And she's on an algorithm. So the algorithm believes, like, you know, like, I we did what we're supposed to do, our settings are good. And what I was trying to say to her was, like, I let her go for a little while, meaning, like an hour or so. And then I walked up to her and I said, Hey, I think a temp basal here would cut this number down more quickly. She didn't have a good reaction to me, you know, suggesting that. And she said, I'm fine. I've got it. And I said, Martin, if you had it, it wouldn't be like this now, because you would have made the adjustment quite some time ago, and we wouldn't be in a situation. You wouldn't be in this situation. But why do I like freudianly slip and say we wouldn't be in this situation because it's also nine o'clock at night, and the algorithm is going to keep pouring insulin on this problem. It's going to break it eventually, and you're going to get low at four o'clock in the morning, and then I'm going to wake up, and you're going to wake up, and, you know, we're, everyone's gonna have to take care of it. And then blah, blah, blah, and then, you know, etc. So exactly that happened, because I understand how the insulin works, especially in her right like so exactly this thing happens. It wasn't four o'clock in the morning. I missed a little bit on that. It was five o'clock in the morning, and then I was up for two hours after that, and I spent the rest of the day tired. And she said, No, I woke up for the low and I took care of it. And I said, No, you did. You woke up and you took care of it, and then your blood sugar shot up into the two hundreds while you were sleeping. So you took care of the low, but just created a different issue that I took care of. If nine hours before that, you would have made a more aggressive Bolus at the pod change and added a temp basal to the food. None of this would have happened. So when you tell me, I'm fine, I've got it, you actually have to have it if you want me to be able to let go in my mind. And I was like, and that's the thing we're trying to get to. You can't just say I've got it, I've got it. And every parent listening is laughing, because every kid does this, not just about diabetes, but everything else. I got it, I got it, I'm fine. I got it, I got it, I'm fine, right? She goes, Well, just, I'll take care of it, and I'll learn from it. She's being very reasonable, like, you know, you know. And I said, No, I want you to have these experiences, learn from them. I was like, but the experience doesn't need to last nine hours and end with, like, carbs in the middle of the night that end up with a high blood sugar later. I was like, There's you can have that experience without, without all this happening. But the thing I wanted her to really take away wasn't going back to like, if she had a kid, she'd understand, I'm not thinking just about this, like you're just thinking about this situation. I was like, and this might be unfair, but I'm thinking about the 500 young people I've spoken to in their 30s who tell stories about, you know, when I was college aged, I, you know, wasn't as on top of my diabetes, I should have my parents tried to help. I yelled at them, told them to leave me alone, that I was okay. And now it's 10 years later. And you know what? I wish they wouldn't have given up and I was like, and so between, I wish they wouldn't have given up. And some of them are not just saying that from a relationship standpoint, some of them are saying, I have issues now. I have medical issues now, and I needed somebody's help, and I didn't realize it at the time, and I even maybe went so far as to push help away. And I was like, so you have to understand that from my perspective, me just saying, No, it's okay. I won't think about it anymore. It feels like I'm trying to it feels like I'm killing you, like some way, like, either, you know, like in one of the ways that I've heard people describe over and over again. And I was like, so we need to find a better way to uncouple the. This, what used to be a child with type one relationship to an adult with type one relationship. We need to, you know, amend this and make it so that it's more workable. So we put a plan in place. Like, we have a couple of sticking points, so we picked one, we put a plan in place for that. And actually, it's something we're doing right now. It's going very well so far, but it has to do with, like, you know, we set her up to do something, and then the deal is, is that I don't look at it again for two weeks well, and she's going to manage that thing, and then two weeks from now, we'll assess it and see how we went. But it's on her to do the thing, and it's on me to not mention the thing. So, like, that's what we're doing right now. I don't know how it'll work out. I'll let you all know when I know it's an interesting process, because it's not going to stay the way it is. It might not just gently transition to the next way it goes. It's tough man, because she'll go away to college and she'll take good care of herself. Like, that was Arden's point during the conversation. She's like, you know, I'm not doing the job you did, like, a 1c wise and stuff. But she's like, but I kept my a 1c in the sixes at college, and that's amazing. And I thought, and I said, Yeah. And by the way, I've told her that 1000 times. She knows that's amazing, because I'm the one who told her, I'm like, This is amazing. Most kids don't go away to college, keep their a 1c in the sixes. Like, it's really awesome, you know, but it doesn't make the other thing not worrisome, because of all the people that I've spoken to who you know, you can go back into the first 10 episodes of the podcast, right? There's a episode about, maybe in the top 30, like, episodes about, like, roller coasters, and this woman comes on and tells this story about, like, you know, the doctor told me that up to 200 was okay, and then I would let my kid's blood sugar sit at 200 then it went to 210 and I thought, well, that's only 10 more than 200 and then when it was at 250 I was like, it's only 50 more than he said. But now the kid's blood sugar's at 250 when you really want it to be 80. So is it 50 points higher than you want it to be, or is it, you know? Is it you know, 170 points higher than you want it to be? And she talked about how you can just lull yourself to sleep, that frog in the pot idea. And I know that's what happens to a person, so I don't know how I'm supposed to know that not say anything. And that was my point to art. And I was like, if you had a kid, you'd say something too. So anyway, good luck. Yeah, I was gonna say you've been getting divorced. Sucked way to get wait till this happens. You
"Mike" 1:02:29
hear me, give me a sneak peek of seven years from now. All right, yeah, yeah. And
Scott Benner 1:02:32
I don't know if you can avoid it or not. I don't know if it's not just part of the process of of this, of the maturation of your relationship, you know, yeah, what a bummer. Good luck everybody. No, it'll be and it's gonna be fine, but it's a lot of work. It's just a lot of work. There are times where even, like, I'm getting older, I'm like, I need things to not be so much work. But that doesn't just because I need it. Doesn't mean that's how it how it goes. Honestly, I think art and I in a really good place. And I think even, like, a year from now, when she turns 21 or so, I actually think we'll be coasting by then. And I'm not upset that this process took the time it took. It took what it took, and and she's also her outcomes are really great. So ah, did you like this? Did you get everything out you wanted to say, or you got more?
"Mike" 1:03:21
Yeah, no, I think, think I say everything I wanted to say. I really appreciate the talking to you today, and it was awesome to come on this really, really, really great.
Scott Benner 1:03:30
Oh, I think that's lovely of you. I appreciate you saying that I and you saying earlier, I didn't really mention it, but the podcast was really helpful for you. I'm, I'm thrilled about that. I'm super happy you found it and that it, that it did what it did for you and your daughter.
"Mike" 1:03:44
Yeah, the podcast and the Facebook community. I mean, it's, it's been a blessing for sure. Don't know where we'd be if we didn't find this community, like, honestly, the work that you do, and everyone that joins it, it's just, it's so great to see people helping
Scott Benner 1:03:55
each other. Yeah, no, I agree. I can't. I keep thinking that, um, I, you know, I have a get together, coming up with like 100 of my listeners. And I'm like, I was thinking about this morning. I'm like, am I gonna cry when these people, when I look up and see all these people together and they're meeting each other and having, like, a connection? I'm like, I'm gonna cry. Like, there's gonna be pictures of me crying. I like, I know for sure. I'm excited to to be more present in that present place sounded like a hippie. Like, I'm not, I'm not sorry. I'm not from San Francisco, but I'm super excited. That was it. There was a knock. It wasn't a knock. It was a joke to Erica. I hope she hears it. Like, once, I'm immersed in that and I can see it happening, like, not just for five minutes or an hour, like, you know, I've been to plenty events where people meet each other, but it's a couple hours here and there, but like to really sit with them for days and days. I'm excited to, like, figure out what it is that is touching them at that point. Like, I want to hear about that from them. So anyway, I mean,
"Mike" 1:04:51
it's a celebration of your impact and legacy too. I mean, that's powerful all you've done. I mean, that's gonna be really cool for you. What a great experience. And for the people that are gonna be. Either I gotta
Scott Benner 1:05:00
get you to write my bio. That was awesome. I've never once thought I had a legacy, but when you settle I was like, Yeah,
"Mike" 1:05:09
my mom said I should always write some kind of greeting cards. But
Scott Benner 1:05:11
no, yeah, she might not be wrong. I used to think I was gonna write funny greeting cards, but I didn't think anybody would buy them. This is really great of you. I appreciate you taking the time. If you hold on for one second, I'll say goodbye to you. Off the air. Hold on one second.
Thanks for tuning in today, and thanks to Medtronic diabetes for sponsoring this episode. We've been talking about Medtronic mini med 780 G system today, an automated insulin delivery system that helps make diabetes management easier day and night, whether it's their meal detection technology or the Medtronic extended infusion set, it all comes together to simplify life with diabetes. Go find out more at my link. Medtronic diabetes.com/juicebox the episode you just enjoyed was sponsored by the twist a ID system powered by tide pool. If you want a commercially available insulin pump with twist loop that offers unmatched personalization and precision or peace of mind, you want twist twist.com/juicebox having an easy to use and accurate blood glucose meter is just one click away. Contour, next.com/juicebox That's right. Today's episode is sponsored by the contour. Next Gen blood glucose meter. Hey, thanks for listening all the way to the end. I really appreciate your loyalty and listenership. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox podcast. The podcast contains so many different series and collections of information that it can be difficult to find them in your traditional podcast app sometimes. That's why they're also collected at Juicebox podcast.com go up to the top, there's a menu right there. Click on series, defining diabetes. Bold beginnings, the Pro Tip series, small sips, Omnipod, five ask Scott and Jenny. Mental wellness, fat and protein, defining thyroid. After Dark, diabetes, variables, Grand Rounds, cold, wind, pregnancy, type two, diabetes, GLP, meds, the math behind diabetes, diabetes myths and so much more, you have to go check it out. It's all there and waiting for you, and it's absolutely free. Juicebox podcast.com if you're looking to meet other people living with type one diabetes, head over to Juicebox podcast.com/juice cruise, because next June, that's right, 2026, June. 21 the second juice Cruise is happening on the celebrity beyond cruise ship. It's a seven night trip going to the Caribbean. We're going to be visiting Miami Coke, okay? St, Thomas and St Kitts, yeah, the Virgin Islands. You're gonna love the Virgin Islands. Sail with Scott the Juicebox community on a week long voyage built for people and families living with type one diabetes. Enjoy tropical luxury, practical education and judgment free atmosphere. Perfect day at Coco Bay St, Kitts st, Thomas, five interactive workshops with me and surprise guests on type one, hacks and tech, mental health, mindfulness, nutrition, exercise, personal growth and professional development, support groups and wellness discussions tailored for life with type one and celebrities, world class amenities, dining and entertainment. This is open from every age you know, newborn to 99 I don't care how old you are. Come out. Check us out. You can view state rooms and prices at Juicebox podcast.com/juice cruise. The last juice cruise just happened a couple weeks ago. 100 of you came. It was awesome. We're looking to make it even bigger this year. I hope you can check it out. The episode you just heard was professionally edited by wrong way recording, wrong wayrecording.com.
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Steven, Stacy, and Nicole join after spotting Scott’s FB post about a hiccup with a scheduled episode—stepping in to share their voices and stories with the community.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends and welcome back to another episode of The Juicebox podcast.
I just had somebody not cancel, but they're on vacation and their internet connection sucks, so I rescheduled her, and I'm putting up a post on my private Facebook group right now. It says, Who wants to record a podcast episode right now? And I'm just going to hit post right now. Ready? It's 11:40am I am here to tell you about juice cruise 2026 we will be departing from Miami on June 21 2026 for a seven night trip, going to the Caribbean. That's right, we're going to leave Miami and then stop at Coco k in the Bahamas. After that, it's on to st, Kitts, St Thomas and a beautiful cruise through the Virgin Islands. The first juice Cruise was awesome. The second one's going to be bigger, better and bolder. This is your opportunity to relax while making lifelong friends who have type one diabetes. Expand your community and your knowledge on juice cruise 2026 learn more right now at Juicebox podcast.com/juice. Cruise. At that link, you'll also find photographs from the first cruise. Nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan. This episode is sponsored by the tandem Moby system, which is powered by tandems, newest algorithm control iq plus technology. Tandem Moby has a predictive algorithm that helps prevent highs and lows, and is now available for ages two and up. Learn more and get started today at tandem diabetes.com/juicebox this episode of The Juicebox podcast is sponsored by the Dexcom g7 the same CGM that my daughter wears. Check it out now at dexcom.com/juicebox All right, I just had somebody not cancel, but they're on vacation and their internet connection sucks, so I rescheduled her. Caitlin, that was you, in case you're listening. And I'm putting up a post on my private Facebook group right now. It says, Who wants to record a podcast episode right now? You need a mic with headphones, a quiet space and solid internet connection. Will take about an hour, no video free for all. And then I put the link to this recording right here, and I'm just gonna hit post right now. Ready? It's 11:40am post, all right, let's see if people pop in or not. I think this is interesting. Oh, you're gonna probably want me to keep talking. I just want to sit here quietly. Could I just sit here quietly? And then rob edit out the quiet and then tell us how long it's been since somebody popped on maybe, excuse me, I know Rob loves it when I use a metal cup with ice in it. Sorry, Rob, oh, here comes somebody. Steven. Steven, hey, hey, man, how are you going? Scott, good, good. How are you
Stephen 3:09
all right? So, yeah, I'm looking forward to seeing you on the boat in the physical sense.
Scott Benner 3:15
Me too. I can't wait to meet everybody. It's going to be fantastic. Yeah, I didn't know Ryan was going, that's cool. There's a lot, a lot of people coming. I couldn't imagine, honestly, like, when the person approached me to do this, I said, Listen, we got to have an out. And she, she says, what? I was like, it was like, when three people want to do this, I said, I'm going to be embarrassed. Like, you know what? I mean? Like, we're gonna have to pretend it's not happening. It'll be interesting. Yeah? And sure enough, we got 100 people coming. It's awesome. You know? Yeah, you know, yeah, and she wants to do it again next year. She's already like, we should set it up again for next year. I think it's going to be great. I think it'll grow. And I was like, so we'll see. Let's, let's look into it. So, yeah, I
Stephen 3:53
mean, it is overwhelming though, setting up a boat and getting on a boat and all that stuff. Oh, still.
Scott Benner 3:59
Yeah, no kidding. I mean, it also taught me that I got to try to do something on land too. So I'm working. I'm working right now.
Stephen 4:09
Good, that would be nice, you know, no, that would be nice to meet at a location or something like that. That'd be cool. Yeah,
Scott Benner 4:14
I'm trying to figure it out. I'm going to start slowly with touch by type one is going to help me set up an event in Philadelphia, and then we'll kind of like, go through the process, see how it works. And then how is your friends for life, relationship with them? So I've never been there before. I'm going, you haven't been to one never. I've never been there. I'm going, I'm going, this year. Oh, you're gonna go to are you in Orlando? Yes, hey, I'll see you there. Are you gonna be there? Oh, no kidding. Oh, that's awesome. Yeah, no, I'll be there, yeah. So, yeah, I'm doing the cruise, getting off the cruise I record for a week, and then after the fourth of July, I fly down to
Stephen 4:51
back again. It's like, bang, bang. No, that's great, because I went to Disneyland last year, right? It was the first I, you know, for years and years and years. Just thought that I'd like to go, and I went, and I was just blown away by how nice the people were, how comfortable I got to meet with ginger there. That was interesting. Yeah, that's awesome. And it was just a really warm, fun open event. And then that, you know, kind of like a camp environment, really. I've
Scott Benner 5:19
heard that even though it's children with diabetes, that a lot of type ones, adults come
Stephen 5:23
Yeah, the one, they said, the one in Orlando, is going to be more than 50% Oh, no kidding, yeah, that's going to be it's really risen quite a bit. And they said his daughter, the one that started it, is a nurse now, and a CDE. And she said, Yeah, home that the me's are coming back. So they're now adults with kids. Oh, that's awesome. So they're on their, you know, they're basically in their second, third generation of people that have been involved in
Scott Benner 5:50
this. Oh, it's crazy. Yeah, I got approached by tandem, and they asked if I'd come down and do some stuff with them at the event. So I'm going to, I'm going to have my own booth, but I'll also be working with them a little bit. I'm gonna be doing like, on the like, kind of like, on the fly interviews with little kids with type one. Oh, cool, yeah. So we're gonna sit down and, like, talk to little kids and record it, I think, for social media and stuff like that, and then the rest of the time I'll be at my booth, you know, trying to tell people about the podcast.
Stephen 6:21
Yeah. I mean, the new algorithm is so much greater for the kids. It just, I'm blown away at the flexibility in the new algorithm. Oh, for control. IQ, yeah, yeah, it is really nice. In fact, Joanne Milo, I'm involved in a good group with her. In fact, that's kind of one of the things I wanted to tell you is the old people. We need some podcasts on old people
Scott Benner 6:44
with type one for ways to, like, manage, or
Stephen 6:47
No, just the whole package, the entire package. Medical challenges are number one, which is managing and being able to manage at that age, and then the things you have to overcome in that process, there's a website that Joanne's leading the push to put together, which is a website for older diabetes, and it's called T, T 1d to 100 is going to be the name of the site, and it is going to have all kinds of resources and information and stuff that will be accessible by anyone, and then lead them in the right direction. It's kind of like, in some ways, I think of it's going to be like Jay Jones 504 site, where you go up and there's resources, and you can look at resources. It won't be a Facebook page, but it the race resources will be there. So we've been putting together resources, and it's just an audience that is just kind of a forgotten audience, and people don't realize the challenges, the extra challenges, yeah,
Scott Benner 7:44
well, I can imagine how easily it would be to get to get forgotten, because nobody's selling to you anymore, right? So you're not, you're not a focus for that. It's nothing fun about it. No, you can't put it on social media. It doesn't, it doesn't have that kind of judge. How do you think it gets out to people, though? How do you reach the people? Let them know that the information is there.
Stephen 8:01
That's part of what you know. Joanna, actually, she's she may be able to partner with taking care of your diabetes group, and both doctors have talked to her and said, we've got to do a show on it. Okay? So that may be one opening. And then, of course, you know, be nice to have one on your side too. No, I would. There's a lot of silent on the Facebook page. There's a lot of silent people up there. Because if there's something up there about Medicare, all of a sudden you're getting all kinds of questions.
Scott Benner 8:26
What I would want to do is build out a list of of important points and then put a series together around it.
Stephen 8:33
Oh, that would be fantastic, because the aspects would be something like, how do you get coverage, you know, and how do you deal with the pharmacist, and what do you do when you go to a hospital? And those are the kind of the groupings. And actually, the groupings that she'll have on the website will be pretty much outline what you might want to do in terms of a series.
Scott Benner 8:50
Oh, I'll talk to her about it. Steven, I have other people jumping in. Now, this didn't occur to me that other people will do it. I'm going to see what I got here. Hold on, a second. So we've got, oh, I like these people. Hold on. We're gonna let Stacy in. I don't know how many people voices I can do before this will become confusing, but Stacy, yes, sir. Hey, Steven jumped in already. But, uh, so you're here with Steven and I. But how are you? I'm good. How are you, I'm good. Do you want to, like, record an actual, like episode, or you just want to say hi? Oh, I don't care. You don't care.
Stacey 9:23
I would like to record an episode eventually. Yeah. Well, so today's good, or another day is good. What do you want
Scott Benner 9:29
to talk about? We'll kick Steven right out of here. Don't you worry. No, what do you want to talk about?
Stacey 9:35
No, Steven, anything and everything. I've, well, I've had diabetes for almost 30 years. So I've been in and out of everything, anything from diabolimia to addiction and alcohol. My sister was diabetic and she passed away when she was 30. I mean, just, there's all sorts of things we could talk
Scott Benner 9:56
about. Wow, that's something. Do you really feel like? Ready to do this now? Or. Would you like to just get on the schedule and get set up? I don't care. I'm up for anything really. All right, yes, hold on a second, because I think I'm gonna get you on the schedule. Let me, let me, let Nicole, and also let me, let me go to Facebook and like kill this post. Hold on a second. All right, hey, to make sure nobody else jumps in, Nicole, how are you I'm good. How are you good? Steven and Stacy are here, and I'm going back to Facebook to delete this post so more people don't show up. Hold on one second, I have to say. So Stacy jumped in with some really good ideas for an episode. I think I'm just going to set her up in a on a schedule so she can come on and really get a get a good all right. Hold on deleting this here. Good. Thank God, still a good after dark. Yeah. Oh no. Well, I mean, as soon as you started talking, I was like, well, Stacy has an after dark. Has an after dark for sure. Oh, yeah, hold on a second. We'll get you, uh, we'll get you all set up. When do you want to do it?
Stacey 10:49
I'm available whenever. I'm my own boss. I'm a cat sitter.
Nicole 10:53
So,
Scott Benner 10:54
yeah, well, I'll tell you what I could do. Would you be up for the 25th of July, I would love to Okay, so I'm gonna send you a link. I'll do it right now. Can I just drop it in here and you can go over to the 25th of July and grab up a time that works for you? Beautiful, awesome. How long have you been in the group? Probably, like, two years now, maybe Awesome. Yeah, have we ever spoken before? No, sir, no. Okay, hold on a second. No, here's the link. Perfect. Got it? You're gonna see other availability, but definitely just do July 25 Okay, cool, awesome. Okay, all right. Hey, Nicole, what's going on? Hey, how are you? I'm good. Thanks. I see you all the time online. I try. Yeah, it's nice to speak with Speaker knowledge that you think it's in there. It is. It's
Nicole 11:49
just timing, you know, like timing for insulin, but it's timing when you need what you need, you go seek that knowledge. Okay, it's there.
Scott Benner 12:00
So whenever you have a question, you go to that Facebook group and you get an answer
Unknown Speaker 12:03
for the most
Nicole 12:04
part. Like, this morning, I keep hearing people say, go back to the pro tips. So I've scrolled them. And this morning I listened to the first one, if you're new, or restarting, and it triggered some things with me,
Scott Benner 12:18
really. So you've heard them before. And how long have you had diabetes? Two years, two years, Steven, how long have you had diabetes?
Stephen 12:28
55 and a few weeks. And yes, the time I listened to one, I actually learned something too.
Scott Benner 12:35
Not crazy, why? But like, Nicole Steven, like, why is that perspective? So your perspective keeps changing, and then you hear something again. It strikes you differently.
Stephen 12:45
It's listening to other perspectives that open the little thought, or the door that says, hey, maybe you know, and something like that, yeah, either that or it has me screaming something at the podcast, saying, No, this is how you
Scott Benner 12:58
do it. Oh, yeah. Well, I can't be right about everything. I can vouch for that. So Nicole just two years as a type one.
Nicole 13:07
Yes, I'm the the new early diagnosed person. I had breast cancer, and I believe Keytruda triggered my pancreas to attack itself. That's an immunotherapy for cancers, a bunch of different cancers. Anyway, yeah, so I think that's how I got here. Okay,
Scott Benner 13:29
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Nicole 15:38
I don't think so. I might have had a grandmother, a great grandmother, who may have had some issues, but again, this was like back in the early 70s, and either she wasn't diagnosed or she didn't know, and she was elderly at the time.
Scott Benner 15:54
Yeah, who knows? How about you? Stacy, how long have you had it? I've had it for almost 30 years. Wow. And how old are you now? I am 39 Oh, you were little. I'm a little one. Yeah, even 55 years. How old were you?
Stephen 16:08
I was 17, and I got out of Vietnam.
Scott Benner 16:12
Wow. Do you think? Do you ever think about trauma? Like you hear people talking about that a lot lately, like I had a traumatic event, then I was diagnosed afterwards.
Stephen 16:20
Mine can only be aligned with I had several months of low blood sugars post meals, so things were not working right ahead of time. And I've heard a lot of people describe that, especially in the mid teens and 20s, yeah, and that that was an additional symptom they don't talk about, and then got a fever that was like 106 for half a day, and then that, from then on, everything went wrong,
Scott Benner 16:42
just like that. Nicole, how long did it take you? What was the breast cancer like from diagnosis to completion? How long is that? That time
Nicole 16:51
I was diagnosed in October of 22 I started chemo in November of 22 and I ended my last one in April, April or May of 23
Scott Benner 17:04
okay? And they remove your breast. Uh, yes, okay.
Nicole 17:08
So then that happened in August, I believe of 23
Scott Benner 17:13
I see, did you opt for an implant? Or did you just not?
Nicole 17:19
I went for the implant. Either they have other surgeries, but they are very extensive, removing belly fat, which I have none, or fat from other areas, and, you know, reconstructing breasts, but that's like a 12 hour surgery, and a recovery is harsh. Wow,
Scott Benner 17:36
gosh. Are you cancer free? Or how do they think? How do they talk about that? Yes, you are.
Nicole 17:43
I was found what they call no evidence of disease in May. So I did in chemo in April, but in May, I went for a PET scan, and then they found no disease, and then they confirmed that in August with the samples when they removed the breast tissue,
Scott Benner 18:00
congratulations. Thank you. That's wonderful. How much does that shift your perspective on life?
Nicole 18:06
I think I was strong already, and so I took it on, head on, full on, with the confidence that I was going to be successful in the end. Okay, so I think it depends, because like your group, there are other Facebook groups for survivors and women going through breast cancer, and there are all levels of, you know, despair and distraught, and the chemo, how harsh it is, and some people take it well, and some people just don't,
Scott Benner 18:39
yeah, so then, after you went through All that, how long was it before you got type one? When I
Nicole 18:44
went for my labs in May, my
Scott Benner 18:47
blood sugar was 424, right? And April, you finished. So just right away,
Nicole 18:51
right to it, right to it, they diagnosed me as a type two.
Scott Benner 18:55
A slap in the face or like, did you feel like, oh my god, there's another thing. I
Nicole 18:59
felt like, Yes, oh my god, there's another thing, because right before that, my thyroid went out of whack.
Scott Benner 19:05
Oh, geez. And that's how long ago now? No, it's about two years, am I right? Yeah, okay,
Nicole 19:11
the thyroid went first. So the thyroid kind of petered out. I would say in February of 23 maybe March of 23
Scott Benner 19:20
Nicole, you want to get on the podcast too, and, like, do a like, a proper episode, sure. Okay, we'll get that set up too. And Steven, I see your note here, and you are going to be happy to know that as soon as I get back from friends for life. Tandem, I are putting together a Pro Tip series for control IQ, like the one we did for Omnipod five.
Stephen 19:41
That'd be great. I just we need to add some stuff in there that they don't say, though, and that is the way that the algorithm works. They don't want to tell you. And the people the push for doing things in the algorithm and setting it up and not prioritizing basal testing is a big, big, big, big mistake by tandem,
Scott Benner 19:59
okay? Okay, so what I'm going to do is, when the time comes, so I've already, oh, this is probably boring, but, like, I've already, like, agreed to do this with them. We have, like, a, not, we've agreed to do it. So it's happening. That's great. Yeah, I'll go out to the audience and get everybody's questions. And so when that happens, make sure you you throw your thoughts in there. Then I'll collect them, while I'll go back to them. We'll put together a, you know, a flow for a conversation, and then, yeah, then we're gonna do, I
Stephen 20:25
kind of ended up being kind of an expert on several podcast, podcast group meetings and zoom meetings. When I'm there, they say, not there, they save questions, and then when they come on, they give me questions. Okay, good, or I get them. So
Scott Benner 20:41
I know it pretty well. All right, awesome. I'll be able to ask them directly then and make them, you know, make them, or have them talk about it. All right, so, Stacy, Stacy, you got your link? Yeah, I'm signed up. Awesome. And sir, are we, I can? Are we gonna cry when you and I do this? Or, like, what is your story? Like? Super sad. Your internet's a little shaky, so we're gonna have to figure that out before we get back and recording. Okay, yeah, are you, um, at home now? I'm at home now, yeah. So I don't know if you're on Wi Fi or you're wired. I'm not sure, but you jump, you your voice leaves while you're talking. So we'll figure that out. Okay, you know what I mean? Like, do you have a wired computer at home? One that's directly
Stacey 21:25
No, I'm so non technical. I have an iPhone 12 that I'm using right now with wired Apple earbuds, they
Scott Benner 21:34
sound fine. It's nothing wrong with the way it sounds, just that you kind of come and go. So we'll probably
Stacey 21:39
okay. I could go to where, like, I have Wi Fi when we when we do record awesome,
Scott Benner 21:44
that'd be perfect. That's great. Let's do that for sure, because I feel like I'm going to hear a number of different twists and turns in your story. I want to be able to dig into it really well, yeah, yeah, Nicole. I think we're gonna have to do the same thing like, so what do you have? Are you able to record? Nicole? August 8 or fourth. It's a Monday and a Friday.
Nicole 22:05
Fridays are better. Okay, so right now, I don't have anything on my Work calendar, and what time were you thinking?
Scott Benner 22:14
It doesn't you can choose the time. There's a link in the chat here, and if you click that and go to August 8, you can take whatever times that you want. Okay, all right, yep, awesome. Okay, all right. What else should we talk about? I like, this is
Unknown Speaker 22:29
nice,
Nicole 22:31
ninja level stuff. I feel like, I feel like my timing is off, and pre labor Bolus, I'm working on with some foods. I know you're gonna come up with the episodes of the food things and how to Bolus for them.
Scott Benner 22:46
Yeah, I can't wait to see how that goes. So Jenny and I are gonna start that on Friday where we're just gonna take one, like, one specific food and just talk about it, like, straight through, and just do it over and over again with a bunch of different foods. They'll probably end up being shorter, like, you know, probably 10 minute conversations around that idea. That's one of the two things that people ask for all the time. Like, can you tell me how to Bolus for this specifically? And obviously, I don't think we can tell people exactly how to Bolus for something, but we can tell them the things they should be thinking about and break down that item. And the other thing they always want is, like, reading graphs. But I don't know how to do
Nicole 23:18
that without video. That was my question. I'm like, Scott, yeah, you're
Scott Benner 23:22
not the only one. Trust me, people send a lot of it's like, can you do episodes about reading graphs? And I'm like, we don't need to see the graph while we're talking about it, though. And that's the one thing I kind of can't figure out.
Nicole 23:34
So can you take anybody's graph? Yeah,
Scott Benner 23:37
then how do the how does the listening audience see the graph. That's that's the problem. Like, that's the thing I have to figure out. And right now, the podcast apps, they don't, they don't allow me to, like, send you, like, a singular image in that and then to say something, like, it's on a link and you can go look at it right now. Like, I don't know if people would really do that, or if I'm not sure, I guess, but it's on my list. So unless Jenny and I get old and give up or something like that, we'll probably get to it eventually. I just don't really know how to do it yet.
Stephen 24:11
There's not that many different kinds of graphs. We come up with special names for them, like the roller coaster and the Dippy, you know?
Scott Benner 24:20
Yeah, oh, I see what you're saying. So you go from an Upsy into an Upsy, yeah? You could talk
Stephen 24:26
about if the Dippy sharp and the Dippy comes back up quick, you know it, yeah, things like that.
Stacey 24:33
You got cat ears. I bake my graphs into a lot of cats
Stephen 24:38
are using an algorithm or a bump with an algorithm.
Stacey 24:41
I'm in, uh, Omnipod five, but I do a lot of bumping.
Scott Benner 24:45
Yeah, you're having to, like, step in and give insulin. Oh, yeah, I
Stacey 24:49
do, but it's only, like, point one unit, point two units at
Scott Benner 24:52
most, and that helps. Yeah, I have to figure they're going to make that thing more aggressive the next time around,
Stephen 24:59
I. Hope don't understand why they don't log the learning is that it seems like if they log the learning and you kind of report, you'd be able to do something. But
Scott Benner 25:06
I don't know why they don't, yeah, I don't understand the back end of any of those first three days are so critical. I mean, I would just have listen. They're longtime sponsors, and I'm a big fan of Omnipod, but at some point you're going to step back and say, you know, what do I hear when people are talking about other systems? People say, like, that's more aggressive. Feels more aggressive to me than this one, or this one does a better job at that than this. Like, you have to think, if you're trying to sell something you you know, you hear it 10 times. You probably think, well, maybe we should make an adjustment. So I don't know. I don't I don't understand the business of it at all. So I don't know what they're doing or what anybody's doing.
Stacey 25:41
They just sent the email saying that g7 will go with the iPhone app. Okay? I'm like, Well, that's about couple years later. They say in a few weeks. So I'm like, maybe in a few months they'll have it.
Scott Benner 25:55
Every company does that, the Android iPhone thing, no one's ever like, to my satisfaction, explain to me why it's one of the other when they launch like, you know, somebody's like, Oh, we're gonna launch first for Android, or we're gonna launch first for when Omnipod said years ago, we're gonna launch first with Android, I thought that doesn't make sense. Don't more people have
Stacey 26:15
iPhones? Yeah, Dexcom did iPhone all the time. And then
Scott Benner 26:19
I was like, and why can't you do both? Is it like? Is it you don't have enough hands to do the coding? Is it like? Is it actual like, resources to get it done? Like? And then you think, well, there must be a reason they chose Android first. Then another company steps up and they go, Hey, we're going to come out, but when we're first out, we're going to be iPhone only. And I was like, That blew my mind, because I was because all the things I wondered about didn't make sense anymore, you know, I was like, I figured, oh, there must be a reason to go with Android first, and then another company. I forget which one it was. I don't know if it was tandem. Maybe, like they came out, like iPhone first, then we'll get to Android. And I was like, What the hell? None of this makes any sense to me, having worked
Stephen 26:53
for a medical equipment company. It's resources and dedicating resources, because the time it takes to write, it takes so long, and the time it takes to test it takes so long, yeah? And then you have to have a clinical group available to do the assessments. Yeah, it does. It does. You're right. Though, the planning just seems to be, you know, let's just get this done and out the door, and then we'll worry about the rest later. It doesn't that doesn't make
Scott Benner 27:15
sense. Yeah. I mean, I want everybody to be safe and everything to be done well. But it is frustrating when you know, five people you don't know from the internet figured it out in a week and a half. They don't have to go through the FDA then and everything, obviously. But yeah, it is still frustrating from your pre like, you know, a few guys are like, Hey, we're gonna take loop and turn it into trio, and then they just did it. And now it's awesome, and it works on Android and iPhone, so it feels like it could be done. But there must be a ton of, like, just, you know, back room or governmental or whatever. Like, the hurdles must be incredible, because you can't think they don't want it, you know, like, because I talked to all the PR people and all the companies, they're not thrilled that they have to lean one way or the other. So I don't know
Stacey 27:56
it dictated what phone I was using, because when Omnipod came out with the Android. I went from iPhone to Android every day. I was like, Man, I hate this Android, but it's, you know, it's not gonna be too long. And then two years later, they did iPhone. Went straight back to iPhone. And when Dexcom came out, that's why I got an iPhone. I went from Android to iPhone. So the diabetes tech dictates, like, what phone I use? Oh, yeah, basically, yeah,
Scott Benner 28:24
we opened the box for Omnipod five, and Arden picked up the controller. She's like, what's this for? And I was like, well, that controls the Omnipod. She goes, my phone does that now. And I was like, right? She was, I don't want to carry two things. And that was sort of it, yeah, that kind of screwed out of the box, you know? Now, obviously that's not the same now, but it was on day one. She was like, I don't want to carry more stuff, right? I'm looking for ways to carry fewer things with me. 30 Stacy, you said 30 years ago when
Stacey 28:52
you were nine. I was nine and fourth grade. Yeah.
Scott Benner 28:56
Okay, so you were regular in mph, yep. Okay, Steven, you were beef and pork, right?
Stephen 29:03
Yeah, beef and pork, regular and NPH, until I told them I didn't want to do it anymore
Scott Benner 29:10
when they argued. And Nicole, you just got like, humog or something like a proper Yes, I see you guys talking in the chat. And Steven asked you, Nicole, if your doctors offered you any help when you were diagnosed with type one, and what did you tell them that they said this has never happened to anybody before.
Nicole 29:28
My oncologist, yes,
Stephen 29:30
there's clinical data on that, though, that amazes me. That just blows my mind.
Scott Benner 29:35
Yeah, that's what I was gonna say, like, that's a labeled event, isn't it? Yeah,
Stephen 29:39
is to monitor the other endocrine systems during that process you're supposed to be doing, yeah, it's
Scott Benner 29:45
Keytruda or Keytruda Nicole. Yes, Keytruda, yep. I think that diabetes is labeled for that it is
Nicole 29:53
now that, now that I have it and I listen to the commercials, but they were checking my. My thyroid, and it was normal one week, and the net next week, it was like eight, yeah, my body just was like, done. Yeah. No kidding. I think the same thing happened with the pancreas. It was just like, done. There was no warning,
Scott Benner 30:18
yeah. Keytruda, an immune checkpoint inhibitor, can cause thyroid dysfunction, including both hyper and hyper thyroidism. Yeah, but I guess it also probably saved your life, right? It does, yeah, jeez, yeah. It's a lot. It's a lot to give. Yeah, heavy. What are you gonna Yeah, I don't know. Like, I've never, I don't want to be in that position. I've never been in that position. But, like, did they say that to you, or did they just say, Hey, we're going to use this drug now? And they didn't say, like, also, what these other things might happen.
Nicole 30:46
I don't think I was told this, all of the specifics, right? The key true to this immunotherapy is a new type of regimen that they give all triple negative breast cancer patient. So it's a certain regimen you get, you know, this drug, this drug, and the key true to periodically, and because they it's not receptor positive, so it's not positive for estrogen or progesterone or anything else. So they have to like it, and they call it aggressive. So they try to throw the big guns at it, yeah? Because there's no aftercare for it, either, like, once you're done with chemo and if you get radiation and a mastectomy or what have you, there's nothing else to give to
Scott Benner 31:34
you. Yeah, that's just that. Jeez, are you married? I am not. No, I was. I was going to say, like, Was this something that you need a lot of support from other people for? Or, and did you have
Nicole 31:46
I had a wonderful support group. My son, at the time, was 15, maybe 14, and then my mom, she doesn't live forever, but she came to stay with us for some time. And then at a group of friends, sorority sisters and family who would go to chemo with me each week. I had 12 weeks of weekly and then it progressed to four times at three week intervals. Yeah, before I was done, there was one time I was like, you know, they monitor all your labs. So there was one or two times that I couldn't take the chemo that week because my blood cells were too out of whack or too low. So they have other drugs for that. But I felt supported. It was exhausting, but I felt supported. I felt prepared.
Scott Benner 32:35
I'm glad I almost made you cry actually, when you said your sorority sisters came with you. So let's, let's hold that off till it's just you and I. I don't cry in front of three people. I don't mind doing it one on one, but
Nicole 32:48
and it was hard for me because I'm not the type of person to ask for help. Yeah, right, so maybe that was my part of my life's journey, to be able to ask others for help. Awesome. That's great. Okay? And accept it all right.
Scott Benner 33:03
Well, let's not waste this all here. Nicole, we're gonna we have you book. Stacy, we got to figure out what we're going to call yours after dark. What do you think is going to be called?
Stacey 33:10
Oh, God. You Ever Wanted to talk to a pot head while they are smoking? You can do that with me. Gonna
Scott Benner 33:15
do it while you're Am I gonna have to get weed and do it with you so that we can do it together. That would be really fun. Yeah, I don't know. I gotta save that for season 15. Maybe, actually, you said, oh god. I thought, is that what it called after dark? Oh, god,
Stacey 33:30
Oh, baby.
Scott Benner 33:32
All right, Steven, you were on episode 828,
Stephen 33:36
yeah, were you on another one or no, I don't have another one. No, just that one, okay, yeah, no, I don't know. It's just, I've just talked to you so many times. I've given you so many names and that people that have come on. And then, you know, I look back, and then I go, I feel like I've been on it more than once because of all the people that I sent that have got on,
Scott Benner 33:56
yeah. Plus, we talk sometimes, like, you know, outside of this. So I thought this was really nice. I appreciate you guys doing this. I was nice meeting you, Nicole, and you stay C in person like this. And I'm excited to record with you guys, and I appreciate you jumping on and doing this with me. I was set up with Caitlin. She's a returning guest. She was on like, five years ago, and she pops on, and it took forever for her Internet to connect. And I was like, what's happening? And she finally gets on. I'm like, Are you on? Like, okay, are you in a crater on the moon? Like, where are you exactly? And there was, like, 54321, I'm on vacation. And then I was like, oh, so I tried again, and I asked her a question, and there's five seconds, and then she answers me, and I'm like, Okay, listen, Caitlin. I'm like, this isn't gonna work. I was like, I think you have bad internet. She goes, Yeah, this house sucks, and there's so many people on the Wi Fi. And I was like, Okay. I'm like, why don't we do it next week? And she's like, okay. Then I got done and I sat here, and I was like, I was all ready to talk to somebody.
Nicole 34:59
And. Look, look how every PE everybody showed up. It
Scott Benner 35:03
was really lovely, yeah, like, because there is that thing, you know, like, you I popped on and I, I have this, I don't know what you would call it. I don't think it's imposter syndrome, but, like, I'm waiting for the day that I go to the internet and say something, and no one responds, and I feel like I'm going to be like, Oh, okay, it's over. Now. It's like an unfair ability to, just like, reach out into the world and get a lot of people to respond like, I take it for granted sometimes, because I'll have a question, I'll be like, oh, I'll just ask. You. Know, I thought that after I put the post up today, I was like, Oh, I hope somebody like, reaches out, but it was lovely to meet all of you. And Steven, of course, talk again. I'm going to put this up as an episode. I hope people enjoy it. I think it shows, I mean, obviously everybody's got different stories, and they're all unique and very interesting, but at the same time, like, everybody's in that Facebook group together with all of these different stories. Like, look at you. Like, 55 years, 30 years, two years, autoimmune cancer, like, all these different ways to diabetes, you get into that group and like, none of that. Like, I feel like that all just sort of melts
Speaker 1 36:02
away. No, we're all just there to help each other. Yeah.
Stephen 36:06
Really is lovely, a name for Nicole's podcast. So when it comes up is, is a double badass? Because you've got two worlds. You become a badass. And
Scott Benner 36:16
it's a lot, yeah, Nicole, you have a really good vibe about you online. I don't know if you're aware of that or not. You come across very measured and thoughtful, but feeling. I don't know many people's names, but I know yours like I know yours because you're you're just, you're very consistent, I guess is the word I'm looking for and and thoughtful and inquisitive at the same time. So I'm here to learn. No, I appreciate it. Like, I've said this 1000 times in the podcast, but I made that Facebook group because people bugged me to do it. I did not want to do that because of, like, you know, what it takes to manage it, and what a headache it can possibly be. I didn't know all the good stuff that was going to come from it. And I'll tell you too. And I said this earlier to Steven, I don't know if we were recording or not, somebody approached me about doing about doing the cruise. I like, behind the scenes, said to them, I'm like, well, we need to wait to get out of it, because if nobody wants to do it, I don't want to be embarrassed. Like, I'm not afraid to say that. Like, I don't want to, I don't want to announce a thing and have two people want to do it like it would, I'd be embarrassed, you know. And the same thing with the Facebook group. I was like, I don't want to start a Facebook group and then have, like, you know, 1000 people in there, and it just never grow. And I know that. I don't know how that sounds exactly, this is me being very transparent, like, I would look at that as a failure, and I don't want that, but I didn't think this was gonna happen, for the love of God. Now, I was like, how did this happen? Like, and it last month, out of nowhere, I don't know what changed in the algorithm. We were adding like 200 people a day for like two weeks. Yeah,
Unknown Speaker 37:56
you just posted that like couple days. Stacy,
Scott Benner 37:59
it's funny. Your internet is so terrible, but I still understood what you were what you were saying. Yeah, so there's an automated Facebook post that goes up every 150 new members. It's like, it welcomes people and it gives them links to stuff, right? Holy crap. Like, it just kept happening. And I was like, I'm like, What's going and I thought, is this gonna keep going? Like, it won't. Like, Facebook will throttle it eventually, or do something. But so I happen to unfairly know, because of how big the group is, somebody in the group put me in touch with a family member who works for meta, and I got to ask some questions about like, you know, there's nothing more frustrating than having 65,000 people say, I'm here. I want to hear about the thing that this person is going to say, and then you post something, and Facebook doesn't show it to them. And so like you're trying to understand, like I was trying to understand, is there a better way to do it, or how do I reach people? And I was lucky enough to get on the phone with this meta employee. She said a couple of things that were stunning to me. One of them was, if you would have called me a year ago, I could have just basically turned a dial and made you more popular. And I was like, what? And she goes, Yeah, we used to have the ability to help friends and family on Facebook. And I was like, seriously crazy. She could have just judged me up 10% and been like, here, I'll make sure more people see your content. And she's like, then we don't have we can't do that anymore. And I was like, Okay. And then she talked about, you know, like, ways to phrase things so that, like, you know, the algorithm is more like, likely to show it to people. But it was just all, like, depressing, you know, like, I'm like, I don't want to do all this. Like, I just want to put up a post about how to Pre-Bolus and the people want to see it, should see it. It just doesn't work that way. Well,
Stephen 39:41
one of the things they added, they added this year, which is interesting, is the auto join. So if you're participating in a an arena, whatever it might be, you get invites and or you get auto joined to groups. And I had not seen that before this year, and that's happening
Scott Benner 39:58
quite a bit, but that. Might be great. Also, the, if I'm in inferring from her, yeah, we'll find out, inferring from her conversation that I had with her, the government switched this last time when the when the President switched this last time, what Facebook is doing switched also. And what she told me was, is, we won't be shadow banning medical information the way we used to, yeah, and she goes, that's probably hurting you too. And she's like, so that'll go away. And I was like, okay, like, I didn't, like, I didn't dig into it. Like, you know, politically with her. I was just like, okay, she just said, like, we were quelling medical information, like, so we're gonna stop doing that. You might see an uptick. And I was like, oh, like, even that. Like, piss. I was like, You mean, I'm out there killing myself putting this content together and, like, I'm putting it up, and you're like, going, no and slapping, like, slapping my digital hand. I'm like, Oh my God. Like, you have no idea how much time and effort goes into that stuff. It's exhausting. So, yeah, anyway, all right, you guys are all fantastic. I appreciate this very much. I'm definitely putting this episode up, and then I'll, I'll talk to you, Stacy, and you Nicole and Steven, I'll see you on the ship in a couple weeks, couple weeks, all right, that's exciting. Yeah, I can't wait. I have to. I'll tell you, like, while the three of us are here, Suzanne comes to me and she says, like, this is what I do for a living. I put these cruises together, and I have type one diabetes, and I'm in your group, and I listen to the podcast, and she goes, I just think, like, people would want to get together with other people with type one, like, let's try this. So I was like, All right, you know, like, can we put the whole thing? It's, there's a lot in the background of it, and it was a little overwhelming to, like, just throw yourself into but I was like, All right, like, I'll just, like, I'll do it. Like, let's do it. And, you know, it picked up steam, and we got enough people there was, you know, it paid for itself. Like, no, I'm not. I literally don't think I'm making five cents, but I don't care about that. Like, it's, it's nice, like everybody's getting together, but I got to talk to people more who were doing it. I think it's one of those things where, because I don't have type one, I just don't understand it enough. And I think this is going to help me understand it more. But people are just so thrilled to meet other people with diabetes.
Stacey 42:05
Yep, a diabetes in the wild, nobody's the best,
Scott Benner 42:08
I swear to you, like, I understand it intellectually. Like, don't get me wrong, but like, I don't understand it, I guess, in my in my heart, the way they do and but to hear them talk about it over and over again, like, I can't wait to get on that ship, because even at some point, Suzanne said, Look, we'll build private time in for you so you can get away from people. And I was like, I'm like, I don't want to do that. I was like, let's let me just talk to everybody. Like, she goes, you're going to get exhausted. I was like, well, then I'll get exhausted. Like, I'd like to have a meaningful conversation with everybody on the ship. Like, I really want to understand why is this so meaningful? That's the information I'd like to come away with when it's over. So hopefully it's
Nicole 42:44
nice to personally know someone else who is going through what you're going through, because maybe you don't get it on the Juicebox podcast, but you may get it from a friend who's going through it, or went through it, or maybe not, and then you entice them to come on to the Facebook group.
Scott Benner 42:59
It's just worth knowing somebody else, like, for reasons like, that'll be your own, you know, in the end. But I mean, I see how important is to people. Like, I said earlier, like I did the, I mean, I didn't do the Facebook group, because I was like, Oh, I'll make a place where people will, you know, all the things that happen there. I was just like, people are asking for it. And I was like, okay, but now I see what it does. I tell people, like, privately all the time. Like, they'll talk to me about, like, oh, the podcast, how it helps people. It's like, I think that Facebook group might be more valuable than the podcast. Like, if you had to, like, pit them against each other, because it reaches people who don't listen to podcasts, and that's a lot of people. Like, you know, I love podcasts, but I don't think most people do. It never really grew outside of where it grew to. So I think that means we've reached all the people in the world who want to put headphones in and listen to somebody talk.
Nicole 43:46
I don't think that's the case, no. And I think people come back, yeah. I don't think they go away forever. I think they come back upon need,
Scott Benner 43:55
yeah, reason, yeah. I hope so. You know, when I first started doing it, and I was like, you know, you just make one a week. That's what people tell you a podcast is when you start. And then eventually someone said to me, like, could you make two? And I was like, I guess, so, you know, and then you make two. And I'm like, All right, then covid came, and people were like, everybody with a podcast slowed down their podcasts at first to covid, and I was right away. I was like, that doesn't make sense to me, but the overwhelming thing I heard from people was like, nobody's gonna be in their car. They're not gonna listen to my podcast. And I thought, nobody's gonna have anything to do. They're gonna want to listen to more of your podcast. Yeah. So I started making more, and then people just kept coming back. And was like, why are they not all five days a week? And I was like, Uh, I don't know. Like, you know? And I said, moreover, like, I was scared it would like put people off, but it doesn't. And then one day it hit me, I'm like, a radio show is not on two days a week. Your radio host gets on in the morning every day, Monday through Friday, and talks for four hours. And it's there if you need it, and maybe you'll take 10 minutes of it, or an hour of it, or Tuesday and Monday. Like. Once I could get over I don't know what it is, I don't think it's ego, but like, you get over yourself, like that feeling of like, when you make something and put it out in the world, you want people to like, to want it the way you meant it, like, you know what I mean? You want them to take every second of it. And once, I was like, that's not always gonna happen, and who cares? Like, it'll always be there for them if they need it, and maybe they'll just find one episode a week that's valuable to them, like, that's great. You know, if I only made one a week, it might take me two months to make something that's interesting to you. But if I throw, you know, if I put this thing up five days a week, you're definitely going to find something that you intersect with, yeah, you
Stephen 45:35
know, you know a person that has some insight on that, that really has a good perspective, is Adam Brown, because he's a therapist now, and so that community part and understanding the reason why it works and what's happening. He we had a discussion in a camp a couple years ago, a year ago, and it was really, you know, insightful in the way he was talking about it. And he has a practice in Erica. Knows him, but he has a practice in and he's also the one that wrote the
Scott Benner 46:02
43 list, yeah, that yeah, that variables list, right? Yeah, yeah, yeah. Adam's been on. He's awesome. I really like
Stephen 46:10
he's just, he's just a genuine, genuine person.
Scott Benner 46:13
But I mean, even as you're talking about out there, that's how I feel about it now, like somewhere, wherever you are, whether it's with headphones in your ears or online and you want to interact with a person, there's always, and Nicole, you said this at the beginning, like there's always someone there or something there, or content there when you need it. Like it's not up to me to tell you you need it on Mondays at 10am it's going to be there when you need it to be there. Even as I described it to the advertisers, I'm like, Look, you know, there's ads on every one of these days. I'll tell you, like, I'll do my best to randomize them, but you might end up on a day that nobody listens to and not much I can do about that you really are supporting a public good. I mean, that's how I don't want to say, sell it, but that is how I sell it to advertisers. I'm like, Look, I know that the thing I put together helps people, and you know, I need your help doing it. I can't. I mean, look at us. We're 1230 in the afternoon. You know, I got up this morning and I've been working for a couple of hours. I jumped on to record. I'm going to get done. I'm going to work some more. I'm going to jump on a meeting two hours from now to try to, like, learn more about that circle group, so that, hopefully I can put that together in a way that's helpful for other people who aren't on Facebook and don't want to be on Facebook, and then that's it. It's my whole day. If you really want to do this, it has to be someone's job. I mean, Steven probably knows well, Stacy's for 30 years too. But like, there's been a ton of different orgs that have come along and said they're going to help people with type one diabetes. They all come and go, and sometimes it doesn't even matter how much money is behind them. You know, some of them were pretty big, and it just, they still just peter out at some point. And I think they don't have enough touch points. And that's why I'm so thoughtful about putting the podcast out every day, like I think it always needs to be there, because if not, you know, if you all go away for Thanksgiving and then don't come back, then the thing dies. And, you know what I mean, like, I need it to stay alive, even when people don't need it, so that it's there for when, you know, when they come back around again.
Stacey 48:13
Well, I also like that there's no boundaries for you. You're not afraid to talk about anything. Yeah, and there, yeah.
Scott Benner 48:20
Interestingly enough, that confidence comes from the fact that I have so many advertisers. If I just had one advertiser, I would naturally be scared to make them angry. I mean, I said it earlier when we were talking to you, like, I think the Omnipod five algorithm should probably be more aggressive. If Omnipod was the only advertiser, I don't know if I would say that out loud or not. Like, maybe I'd be like, you know, I know that they've got my back. I know the content works like whatever it is I am where I do. I know it works. So that's good. So now we just agree that that's helping people. And then you have to have the backing to do it, the work every day, to do it, and you have to not get bored by it. And I think that's a little bit of me being older and having grown up really broke. I'm not doing this thinking, like, what could I turn this into? Like, how can I ascend to something else? I'm like, I like this. This helps people. I'm good at it. Now, you know what I mean? I want to keep doing this. And I do see a lot of people like, they're so quick. They're trying to ladder climb so quickly, they'll help you along the way. But that's not their focus. My focus is just helping people come out, get a bunch of advertisers. They back my time and the content. I know it sounds probably ridiculous, but that small sip series that doesn't exist if the podcast isn't what it is, because right, Steven, because
Stephen 49:41
it's the influencer thing on the web, or the influencer thing is not what this is. It's, it's a voice for the community, yeah, and that's, that's a rare thing. It is a voice for the community in many, in so many ways. I
Scott Benner 49:53
appreciate you saying that. But that small sip series, those are my ideas about how I took care of Arden filtered through my. Conversations with Jenny about them, then you get her opinions too. We get them blended together. Then she and I keep working together for years. You can hear as we go on, like, we like, I call it all kinds of stuff, right? Like, it's the bowl beginning series, and it says it's all just ask Scott and Jenny. It's ask Scott and Jenny. Like you ask a question, we answer it the best we can, but we've gotten better at like, our conversations are better. They're more succinct. We know what each other's thinking like it gets better and better. And then one day, someone gets online and says to me, the thing that I have to tell you breaks my heart more than thinking like I don't have time to listen to a podcast. And I'm always like, I'm like, I'm killing myself making this thing for you. Just sit down and listen to it. Okay, fair enough. You don't have time. How am I supposed to take all of this conversation over all these years and squish it down so that a Tiktok generation, and then that's where the Facebook community comes in. I go back to the community, and I say, Look, all I said was a sentence you heard in the podcast that really was transformational for you. What were they? And everybody answered back. And then we just collated them all together, and we said, Okay, here's the top 20. You know, one
Stephen 51:04
of the things that's unique, Scott is that when we in the wild, and the rest can speak to this too, but when you're in the wild and you meet somebody, the kind of conversation you have is very similar to the way in which the stuff comes out on the podcast. And it's not always just diabetes. It's a perspective about diabetes. It's the experience. It's well, what do you do when, I mean, it's broad, and that's what I feel nice about when I'm listening, is it sounds like a conversation. I would sit down and ask somebody if I had the time, if I had the time, if we were both diabetics sitting in a quiet place, yeah. And
Scott Benner 51:40
if you could actually even find that person, find that person? And yeah, no, I appreciate that, because I think it's pretty obvious, if you've been listening long enough, I don't have the actual ability to have a more high minded conversation than the one I'm having. I can't talk down to you. I don't have any ability to talk down to you, and I can't talk at you because I'm not an expert. My very first thought about what the podcast would be was I said, Well, I'll talk to other people with type one diabetes, and then I'll be an avatar for the people listening, because I don't really know what I'm talking about, so I'll ask questions. Hopefully they're the questions you would have if you were talking to the person. I'll just act as the proxy between you and that person you don't have contact with that person. That's the thing I have. And like, I don't know everything about type one. I mean, obviously, but I know way more about it today than I did two years ago, and way more about it than I did five years ago. And if it's working for me, then I have to think it's working for the people listening too, for the very reason that a lot of type ones would tell you they don't like me. I think it works because I don't have diabetes. I think it works because I can't, you know what I mean?
Stephen 52:48
Yeah, you're that neutral, that neutral trigger that says, gee, I've wanted to ask this question, but I haven't asked it. And
Scott Benner 52:56
yeah, I don't have any preconceived notions about it. Yeah, because I've seen really well meaning people with type one get, like, really lit up about something. And I from a, from a you step back and go, I don't really understand why they're so upset. But obviously some happened in their life. This is very triggering to them, you know. And so if you when you put that person in charge of the podcast, now suddenly it's not as down the middle as it could be. It's colored with their perspective still. And I can't do that because I don't, I don't have it to do it with, so I don't know. Anyway, it's a lot, a lot of thoughtful talk about a diabetes podcast. I don't think that much effort should be put into it. All right, I'm gonna let you guys go, Stacy and Nicole. I'm super excited to record with you again, Steven. I'll see you soon. Thanks guys. Yeah, you guys are awesome. Thank you. Take care. Everyone. Bye, everybody, bye, bye,
bye. The podcast you just enjoyed was sponsored by tandem diabetes care. Learn more about tandems, newest automated insulin delivery system, tandem Moby, with control iq plus technology at tandem diabetes.com/juicebox. There are links in the show notes and links at Juicebox podcast.com. Dexcom sponsored this episode of The Juicebox podcast. Learn more about the Dexcom g7 at my link, dexcom.com/juicebox, hey, thanks for listening all the way to the end. I really appreciate your loyalty and listenership. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox podcast. Hey, kids, listen up. You've made it to the end of the podcast. You must have enjoyed it. You know what else you might enjoy? The private Facebook group for the Juicebox podcast. I know you're thinking, uh, Facebook, Scott, please. But no. Beautiful group, wonderful people, a fantastic community Juicebox podcast, type one diabetes on Facebook. Of course, if you. Of type two? Are you touched by diabetes in any way? You're absolutely welcome. It's a private group, so you'll have to answer a couple of questions before you come in, but make sure you're not a bot or an evildoer. Then you're on your way. You'll be part of the family. When I created the defining diabetes series, I pictured a dictionary in my mind to help you understand key terms that shape type one diabetes management. Along with Jenny Smith, who, of course, is an experienced diabetes educator, we break down concepts like basal, time and range, insulin on board and much more. This series must have 70 short episodes in it. We have to take the jargon out of the jargon so that you can focus on what really matters, living confidently and staying healthy. You can't do these things if you don't know what they mean. Go get your diabetes defined. Juicebox podcast.com, go up in the menu and click on series. The episode you just heard was professionally edited by wrong way recording. Wrong wayrecording.com.
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#1607 Three Legged Dick
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or wherever they get audio.
Megan, 36, has lived with T1D since age 4 and now faces lupus too.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Here we are back together again, friends for another episode of The Juicebox podcast.
Megan 0:15
My name is Megan. I am 36 and live in the Midwest, and I've been a type one since I was four years old. If
Scott Benner 0:25
this is your first time listening to the Juicebox podcast and you'd like to hear more, download Apple podcast or Spotify, really, any audio app at all, look for the Juicebox podcast and follow or subscribe. We put out new content every day that you'll enjoy. Want to learn more about your diabetes management. Go to Juicebox podcast.com. Up in the menu and look for bold Beginnings The Diabetes Pro Tip series and much more. This podcast is full of collections and series of information that will help you to live better with insulin. Please don't forget that nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. The episode you're about to listen to was sponsored by touched by type one. Go check them out right now on Facebook, Instagram, and of course, at touched by type one.org check out that Programs tab when you get to the website to see all the great things that they're doing for people living with type one diabetes, touched by type one.org today's episode of The Juicebox podcast is sponsored by the ever since 365 the one year where CGM that's one insertion a year, that's it. And here's a little bonus for you. How about there's no limit on how many friends and family you can share your data with with the ever since now app no limits. Ever since Summertime is right around the corner and Omnipod five is the only tube free automated insulin delivery system in the United States, because it's tube free, it's also waterproof, and it goes wherever you go. Learn more at my link, omnipod.com/juicebox, that's right. Omnipod is sponsoring this episode of the podcast, and at my link, you can get a free starter kit. Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox,
Megan 2:28
my name is Megan. I am 36 and live in the Midwest, and I've been a type one since I was four years old.
Scott Benner 2:37
That's 32 years ago. I know. Wow. No kidding. So do you feel old
Megan 2:45
when I get out of bed sometimes? Yeah,
Scott Benner 2:48
is that your back and your joints? Where do you feel it
Megan 2:51
everywhere, like my shoulder, my back, my legs, my feet. But I also work out five times a week, so I feel like I'm just perpetually sore all the time.
Scott Benner 3:04
Do you have other autoimmune stuff? Like I
Megan 3:07
was diagnosed with lupus in September of 22 the only reason they caught it was with blood work, though, and I don't seem to have any outward physical symptoms. It's not joint pain that I feel. It's more like
Scott Benner 3:22
muscle soreness. Okay, what do they do for that? I'm
Megan 3:26
on hydroxychloroquine. That's the only thing I'm on right now. Does it help? Well, I don't feel like it's ever been bad, so it's hard to say.
Scott Benner 3:34
Is the medication prophylactic? Are they trying to get ahead of something?
Megan 3:38
I think so, because we've determined that I've never really had any kind of lupus flare. They caught it kind of by accident. I had low iron and then pancyte anemia, so all my blood counts were low. They they did further testing to try to figure out the cause of that. They did, like an ANA titer, and then they did further, like more specific lupus testing, and all those markers came back positive.
Scott Benner 4:10
Anybody in your family have it? Nope, I'm the lucky one. I'm the lucky one. That's from a movie. I don't know what that is. I can't think of it. Do you have anything else, like thyroid, celiac, anything there? Nope, no. Okay, nope, any type one in your family? Yes, who my dad? His dad? My aunt, which is my dad's sister, her son, who is type two,
Megan 4:38
my grandmother, which is my dad's mother has type two, and I think that's it.
Scott Benner 4:46
Wow, you guys got carpet bombed with diabetes? Yeah, seriously. But other than that, the lupus is the only other autoimmune thing you're aware of. Nobody's got Ra. One of those grandmoms doesn't have RA or anything like that.
Megan 4:58
No, no. He. Only other thing that I've had is ITP. It's like idiopathic, something where my platelets were super, super low and I couldn't clot. That happened when I was, like, eight years old, and it kind of just resolved on its own,
Scott Benner 5:15
wonky. Yeah. How did they figure that out? Were you just bleeding?
Megan 5:19
Yeah, I lost, I lost a tooth, and I was super excited because I was eight, and I wanted some money from the tooth fairy. Yeah, put the tooth on my pillow. Woke up the next morning, my pillow was covered in blood, and then obviously my mom was freaked out. Yeah, so we went to children's, and they ran some tests in the ED and admitted me. I think I was there for maybe two or three days, no kidding,
Scott Benner 5:44
and then they figured that out that's something. So you're saying that the lupus impact for you, if it's anything, it's muscular, but you don't think you're having an impact,
Megan 5:54
at least not that I'm aware of. I don't know if it's like muscular, or if that's just, you know, my workouts, because it's a feeling that I've felt before, and it was before
Scott Benner 6:06
I had lupus, too. So, okay, how long you've been taking the medication,
Megan 6:10
since like October of 22
Scott Benner 6:14
Oh, okay, like coming up on three years? Yeah, all right, well, and you take, is it a pill a day, or it's a pill and a half. Awesome. Yeah, I don't know what to say. That's it's interesting. I've never had anybody say I have something, but I have absolutely no symptoms, but they're still
Megan 6:30
medicating me for it. Right? Isn't that
Scott Benner 6:32
weird? Do you ever think that you're doing the wrong thing, or do you ever think like, wow, this must be really working. Like, what's your gut feeling about
Megan 6:40
it. Well, my complement levels, which I guess, is how they measure the active disease you have, like the active lupus disease going on in your body. They're always like, hovering at the low end of normal. And there have been a couple of times where they've been actually low. So I think that there is a need for the medication from that standpoint, yeah, but I don't know, like, they kind of just hover in this same little range, and it doesn't seem like, you know, it's raised significantly, but I also don't feel bad, so I mean, feels worth
Scott Benner 7:20
doing and keeping an eye on. Yeah, all right, fair enough. But are you married? Do you have kids? Single?
Megan 7:27
No kids. I have two fur babies, and then I have a boyfriend. Did
Scott Benner 7:35
he come with the dogs? Or did the dogs come with him? Or I came with the dogs? You came with
Megan 7:40
the dogs? Yeah, he has
Scott Benner 7:41
a three legged cat. No, seriously,
Megan 7:45
yeah, named trip,
Scott Benner 7:48
trip with two peas, by any chance? Yeah, yeah, Tao would have done it. So is the cat dexterous, or does it fall a lot?
Megan 7:55
No, he's pretty good with his, um, he's missing a front paw, and he's, he's got this super buff, like one front Paul, and he, he seems to get around pretty fine. I really haven't seen him fall or anything, although I think he's getting kind of chubby, so I think that might be a problem. If pull him over. I know, yeah, keeps being fed the way he is.
Scott Benner 8:20
Okay. So you're diagnosed at a very young age, and I'm gonna ask some questions. I know you have some topics, but let me ask you a couple questions. First, Yeah, cuz you're, you're an interesting age, right? You're in your mid 30s. You're not, like, you're not in your 40s, and, like, giving up already, and you're not in your 20s and still, like, fighting the system, right? Like, you're Yeah, you're in your 30s now, like, yeah, what was it like growing up with diabetes, and was your experience the way you felt it as it was happening in hindsight? How do you feel about
Megan 8:51
it? See, so when I was diagnosed, it was actually three weeks before my fourth birthday, and we were scheduled to go go on like a spring break vacation to I think it was Gatlinburg, somewhere in Tennessee. I get diagnosed. We go to our local children's hospital. And the weird thing about my diagnosis story is I wasn't in DKA. I wasn't sick. My parents caught it pretty early, just because with my dad's family history, like he was well aware of the possibility, so he knew what to look for. So I wasn't sick. I didn't need a bunch of fluids. I didn't need my blood sugar brought down from 1000 so they kind of didn't know what to do with me, and I was just like sitting in the hospital for a couple of days before they discharged us. But back then, it was the regimen was R and NPH, which I could for the life of me, I wouldn't be able to remember how to dose that now, sure, and then, obviously, no CGM. So thinking about that. Just in hindsight, I don't know how my parents, like, didn't lose their minds not knowing what my blood sugar was. And, like, obviously, I'm an active four year old, just running around and being low all the time. And it was a pretty, like, strict meal plan. So it was breakfast, morning snack, lunch, afternoon snack, dinner, bedtime snack. And if you missed any of those, or the timing was off, you bottomed out. Yeah, so from looking back at that now, and if I had a child that, you know, didn't have a CGM, and I don't know, I don't know how I would be able to do it. The technology now is it's great when it works. I know that sometimes it's pain in the ass, but it's so much better than it's flying blind, basically,
Scott Benner 10:53
yeah, yeah. I just had this conversation with Dexcom President Jake, and it's going to be on the podcast in a couple of days, and by the time people hear it'll be a couple months ago. I feel compelled, you know, I ask people for questions for, you know, hey, somebody's coming on from this company. Ask your questions. Mostly people don't jump on and say, like, Hey, can you tell them thank you? Like, you know what I mean? Like, it's like, here are my complaints. They feel like I might have a bit of a pathway to somebody hearing this, and not that anybody's complaints are in any way invalid, but I do sometimes feel like it can overlook what you just said, like this is not perfect, but yeah, you should have been here 40 years ago. Yeah, yeah. I think you'd experience a sensor failure, or, you know, a misreading, or your pump site going bad early, and you think to yourself, this is way better than it could be. Oh, yeah, yeah. So it's tough, because, you know, when people jump in now, they're diagnosed in the last couple of years, you know, they hear there's this great technology, blah, blah, blah, and when it doesn't work, for some reason, they don't make that rest of that connection. Like, I always say, like, go around your house to all of your electronics and all of your gadgets, and they all work the way you think they're supposed to. Like, you know, like, we're still getting there, you know what? I mean. Oh, yeah, technology wise. Anyway, okay, so you're growing up without anything, really. Or, I mean, when do your parents say, Hey, this is on you. Or when do you say to them, I don't need your help anymore. Or do you stay like as a kind of cohesive team for a long period of time? Today's episode is brought to you by Omnipod. It might sound crazy to say, but Summertime is right around the corner. That means more swimming, sports activities, vacations, and you know what's a great feeling being able to stay connected to automated insulin delivery while doing it all. Omnipod five is the only tube free automated insulin delivery system in the US, and because it's tube free and waterproof, it goes everywhere you do in the pool, in the ocean or on the soccer field, unlike traditional insulin pumps, you never have to disconnect from Omnipod five for daily activities, which means you never have to take a break from automated insulin delivery ready to go tube free. Request your free Omnipod five Starter Kit today at omnipod.com/juicebox Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox type that link into your browser, or go to Juicebox podcast.com and click on the image of Omnipod right at the bottom, there's also a link right in the show notes of your podcast player. Why would you settle for changing your CGM every few weeks when you can have 365 days of reliable glucose data. Today's episode is sponsored by the Eversense 365 it is the only CGM with a tiny sensor that lasts a full year sitting comfortably under your skin with no more frequent sensor changes and essentially no compression lows. For one year, you'll get your CGM data in real time on your phone, smartwatch, Android or iOS, even an Apple Watch, predictive high and low alerts let you know where your glucose is headed before it gets there. So there's no surprises, just confidence, and you can instantly share that data with your healthcare provider or your family. You're going to get one year of reliable data without all those sensor changes. That's the ever since 365 gentle on your skin, strong for your life, one sensor a year. That gives you one less thing to worry about. Head now to ever since cgm.com/juicebox, to get started.
Megan 14:39
I'm trying to think when they started, it was mostly my dad, because he was obviously typing himself more familiar with it, because he lived with it already, and he's also in the medical field. So there was, he had all this information and experience. I think as young as, like, six years old. Old, he started giving me the syringe that was already dosed and holding my hand while we both injected. And then from there, I think I was around eight years old when I started doing my own injections. And then I think I was also part of the process of dosing. So they'd be like, okay, Megan, it's dinner time. How much are we taking? And I'd say, you know, whatever. And then, okay, how much mph? And I know that. I think it was cloudy first, then clear. So I was taught that whole process too. So I think probably by the time I was 10 years old, I was at least involved in treatment decisions. And, you know, meal time dosing,
Scott Benner 15:50
okay, that generally meant, like, just making sure you injected on time, making sure you ate at the right times, like there was you weren't doing a ton of, I don't know, adjusting, giving yourself more insulin later? Were you? No, no, you weren't covering numbers or stuff like that.
Megan 16:05
No, that was probably closer to, like, teenage years.
Scott Benner 16:09
Okay. And your father has type one. Is he still alive? Yes. And how is his health?
Megan 16:14
He's good, yeah. You know a 60 something year old white man, so he has high blood pressure, no complications from diabetes so far. When he was diagnosed when he was senior year of college, so I think 23
Scott Benner 16:29
okay, oh yeah, he's been at it for a while too. Yeah. All right, yeah. And do you and he still manage similarly? Or, have you? I mean, have you grown? Have the two of you grown with what you've done over the years, or has he stayed pretty stable and you've changed?
Megan 16:42
So I have the tandem pump, and then the g7 he still does manual injections with Atlantis and Humalog, and then he has the g6 he hasn't upgraded g7 yet. He's a little stubborn. I keep telling him, like because he'll complain about, you know, he'll go and do yard work, and his blood sugar will start tanking. I'm like, Well, you can't do anything about it, because if you decrease your Lantus, you'll be high when you're not doing an activity. And then if you go do activity, you're gonna, you know, tank. So I keep trying to sell him like, you know, the pump, and I think I might have finally convinced him, but, yeah, he's still doing manual injections. I think his a 1c, are mid sixes. He's managed
Scott Benner 17:33
pretty well. Yes, certainly has. And where you're sitting, my last
Megan 17:39
two, it was 5.7 and then I just had one recently in a 6.1 but I also just, like, moved one of my dogs, like, died right after, right before we moved, and then I'm in the middle of, like, a job change, so, like, some stress things have been happening, so I'm okay with, like, The little bit of a bump up that it's had, but I prefer it to be, like, under six.
Scott Benner 18:06
Yeah, did you kill the dog or did it die naturally?
Megan 18:10
He died. He was this little chihuahua mix, and his name was pickle, and he died of liver failure. No kidding, how old? Yeah, he was only seven. That sucks. He had a congenitally small liver, and it just couldn't keep up with
Scott Benner 18:29
his body. You didn't find that out till he was, like, in trouble, I imagine, yeah,
Megan 18:34
we didn't find out till it was like, end stage liver failure, which is, it's super similar to, like, if a person has liver failure, wow, so interesting.
Scott Benner 18:43
Yeah, I have a question you may not have an answer to, because it's your life, and you grew up that way, right? But how do you think your life, who you are today, how you interact with the world now, has been impacted by having diabetes? I don't know that I've ever asked anybody this before, but you feel like wisdom to me and in the right maybe you're probably like, don't give me too much credit here, Scott, but like, I feel like you're a good person to ask this question up. Maybe I'll end up being wrong, but
Megan 19:12
I feel like it's made me more resilient. I don't know. I feel like I owe it to my dad, because he never wanted me to feel like, not that I wasn't different, but that I couldn't do anything that I wanted to do, or that like it shouldn't keep me from doing the things I want to do, and so far it, it really hasn't. So I think growing up with that mindset and then just in general, like having to manage a disease like this, that's like all day, every day, you don't get a break. I think it's just made my you know, given me, like a tougher skin.
Scott Benner 19:51
If I take you back 10 years, would you answer it the same way? Or do you have a different feeling in your mid
Megan 19:56
20s? I might have a different answer, because. Because during my, like, early 20s, I wasn't the greatest at taking care of it. So I went from, you know, being managed by the endo at Children's to, you know, okay, you're on your own. You're 18, and, like, I kind of dropped the ball for a few years after that by not getting, like, an endo immediately after, you know, I left Children's Hospital, so I had a few years where maybe it was just burnout, where I didn't pay attention to it as much as I probably should have.
Scott Benner 20:33
Yeah, where did that put your a one, CS back then nine? Yeah, like, and you think it went on for a couple years, yeah, through through do you go to college? To go through college?
Megan 20:45
Yes, through college, and then in between college and trying to find, like, my first adult job, I, you know, served and bar attended for a few years, and just working in that, like industry, it's common for, you know, people to get off work at like 9pm and then kind of have like a happy hour. So that was probably the height of, like, my drinking phase too. I guess you would call
Scott Benner 21:13
it. I thought you're gonna say do cocaine and have sex with co workers, because some people have come on here and told crazy stories about working in
Megan 21:21
restaurants. Yeah, no, well, I might be boring. You're
Scott Benner 21:25
like, I just got loaded.
Megan 21:28
Yeah, I just drank like, a boring
Scott Benner 21:31
person, like a boring person, yeah, no, seriously, some of the stories people have told about restaurants, I'm like, Really,
Megan 21:37
yeah, no, there are crazy stories that, like, I've heard like, the next day, but you know, I wasn't you. No, I was typically somebody that, like, I was one of the first ones to go home most of the time, because I'm, like, all right, I'm I'm out, but,
Scott Benner 21:51
but you've had a friend come up to you and tell you, Oh, I know why. They call him the short order cook now,
Megan 21:55
yeah, yeah, yeah, stuff like that. Like people getting arrested at three o'clock in the morning and, like, missing their shift because they're in jail. Yeah? Like crazy.
Scott Benner 22:05
Tip your waiter. Yeah, they need it for bail. Yeah, yeah, that's funny. My gosh, okay, so, I mean, you can call it burnout. Like you said, I didn't get an endo real quickly after leaving Children's Hospital, but like, you still knew what you were doing, right? So, like, Is there, like, there's some sort of, like, I mean, listen, this happens to people where they have diabetes or not, right? They reach a certain age and they're like, I'm an adult now, right? Like, and maybe for some people, it's like, I'm not gonna clean my room anymore, or I'm, you know, I'm gonna let my hair grow, or I'm gonna have sex with that guy that my mom told me not to. But like, for you, it's like, I'm probably not gonna take insulin quite as often as I had to. It's yeah, yeah. And you're okay now today, you feel good. Yeah,
Megan 22:47
I do. I feel good despite, you know, having the, you know, somewhat recent lupus diagnosis, yeah,
Scott Benner 22:54
but you know how to use your insulin. You have you're up on technology, you're active. You obviously work out a lot. So let's talk about that a little bit like, yeah, when did you start like, working out? Like, I mean, five times a week is pretty aggressive, right?
Megan 23:07
Yeah. But if I like, don't hit the five days a week, I feel like, gross. So now it's so ingrained in my routine that if I don't do it, it feels weird. But it was like January of 2019, I had, like, the New Year's resolution, I'm gonna get in better shape. And I actually followed through with it, because I, you know, I had said that before in previous years, and kind of just did it for a few weeks and then gave up. Yeah.
Scott Benner 23:37
What does that mean? By the way, you're looking to change your weight, your muscle tone, your physical endurance. What was your goal? I would say body composition. Okay, moving stuff to where you want it,
Megan 23:49
yeah, like adding more muscle, trimming fat in certain places. I mean, probably weight loss was my goal in the beginning, just because I feel like, as women or girls, that's kind of drilled into our heads. Like, watch the number on the scale and now, like, I don't even know how much I weigh right now, I just go by how I look and how I feel.
Scott Benner 24:14
It's a pretty great thing not to have to think about anymore. Like, did your mom put that in your head? Or was it societal? Or where do you think you got it from? Yeah, I
Megan 24:21
think it was societal, like, I grew up in, you know, the 90s and early 2000s so, you know, I graduated high school in 2007 and the look at that time was skinny. It's not like it is today, where they're like muscle mommies and, like, it's cool to be, like, muscular now as a woman that just wasn't a thing or a body image that was widely talking, yeah, accepted back then.
Scott Benner 24:51
Interesting. So, like, so you make this decision in would you say 2019, for your New Year's resolution? Yeah, okay, and you're. Go for it, and this time you don't it goes more than a few weeks. Do you know what the first thing was that happened that hooked you, that kept you wanting to go?
Megan 25:07
I started noticing, like definition in places where I was never able to get it before. And I think the only reason was because I just wasn't consistent enough for a long enough period of time. So when I did start seeing results and like, Okay, well, what's it going to look like in another four weeks, or, you know, another 12 weeks or six months? So I think that's what initially
Scott Benner 25:34
hooked me. Okay, yeah, that's awesome, just seeing some sort of progress. Yeah, yeah. Did you go by yourself? Did you have a buddy? Did you like? How did you make the decision to like, I mean, did you, you know, pair up with somebody to keep you, you know, focused on it.
Megan 25:51
I hired a personal trainer to do, like, three days a week. I think it was just 30 minute sessions. It wasn't even super long. What also helped me stay consistent was like, I'm spending money on this, and I might as well go to these sessions, because otherwise, you know, what am I spending this money for? Yeah. So that was also a big motivator, especially in the beginning, like, I don't want to waste my money, so I might as well go right
Scott Benner 26:20
and did you tell people, like, I do that sometimes I'm like, I'm doing something. I'd say it out loud so I can't, like, back out of it. Yeah, yeah, that too. That is helpful sometimes. I mean, if it doesn't work out, it probably just feels like more pressure. But I do it a lot with the podcast. Like, I'll get on here and say, like, like, what's this thing that I want to do with the podcast that I know is a ton of work, and it might not work out, and it might end up being a waste of time. Like, let me just say it out loud, and maybe that'll make it happen. You know, yeah, it does help, yeah. Would you consider that your, like, your gym routine is, like, anaerobic? Is it more weight related? Is it, you know, aerobic? Like, you know what I mean. Like, how do you like, was it resistance, or is it a little mix of everything?
Megan 27:01
I would say, for the most part, it's weight training. I just started incorporating some cardio back in just because it's summer, I want to, you know, cut a little bit of fat, and I've also dropped my calories. So that's also a big part of it, is the food. Foods like 70% of your your progress and your change. So if that's not calibrated correctly for your body and your goals, I think that's where some people get hung up. And they're like, well, not seeing results, and I'm doing these workouts, and I think that's a big point of frustration for people, is, if the food isn't correct and calibrated to you, you're not gonna you're not gonna see the changes you want to see.
Scott Benner 27:48
So was your nutrition solid before the gym or to going to the gym teach you to work on your nutrition?
Megan 27:54
I think I was eating the right foods. I just wasn't eating the right amounts, like I definitely wasn't eating enough protein, and overall, I just wasn't eating enough calories for muscle
Scott Benner 28:07
growth. Okay, that's interesting, yeah. How do you figure that out? By talking to somebody at the gym, or just by, like, working out, going, I'm putting a lot of effort in this, and I'm not seeing a return. Well, both, yeah,
Megan 28:20
I started, yeah, I started noticing kind of, like, a plateau where I'm, like, I'm not seeing, you know, as much change as I would think that I should be seeing. And I think I mentioned, you know, what I was eating to somebody at the gym, and they referred me to, she's not a nutritionist, but she has, like, a nutrition certification so she can calibrate your macros for you. Okay, that made a huge difference in results. Oh,
Scott Benner 28:49
it's awesome. I didn't know we were going to talk about this, but I'm glad we did, and we are, because, like, Jenny and I are in the middle of putting out a nutrition series in the podcast right now, so it's been, just been, only been going on for a couple of weeks, but she's a, she actually is a nutritionist and and she, she's, like, always wants to talk about this, but it's funny, like, you know, I've kind of talked about this privately and not really said it out loud, but we wanted to do it earlier, but we really felt like I had to build up more of like, I had to build a bigger fan base up and more like, trust with people before you start, because once you start talking about how to eat with people, man, like it, people get pissed about that. You know what I mean? Like, yeah, I wanted the listeners to know. Like, I'm not telling you what to do, and I'm not judging you like that. But here's what Jenny thinks like this. You know, here's what I've learned, you know, but here's what she knows. And I hope this helps you, and if it does, that's awesome. And if, and if you're mad that you hear me saying Doritos aren't good for you, then I mean, hopefully you won't just leave and ignore, you know, your health in general, like, anymore, like, say, but yeah, it's a real feeling, because I you. You know, I made a misstep a few years ago. I, you know, some would say, some people say no, but like, you know, we just put out, like, I think, like, a seven or eight episode Pro Tip series for type twos. And the idea really was Megan, just like, Listen. A lot of you listen and think that this podcast is helping you with your type one. You must know people living with type two. Here's some content you can show them. And yeah, I had, I don't want to say exactly how much I think, but I lost a fair percentage of listeners, you know, basically type ones who are like, you know, I don't want you talking about type two diabetes on this podcast. And it was like, so you now, you know that that can happen. Like, you get nervous when you're like, Hey, we should talk about nutrition next. And I like, party is like, like, this is what people probably, you know, a lot of people don't know about like, you're talking about it now. Like, who would think if you didn't know, who would think, yes, I'm eating protein, but not enough, or, you know, I'm trying to lose weight and build muscle, I need more calories. I don't think those are common sense things like, all the time. So, yeah, it's like, almost counterintuitive, and people do like, they take,
Megan 31:06
like their food and their food choices, like,
Scott Benner 31:10
like politics and religion. Yeah,
Megan 31:13
it gets super personal sometimes. And I just, I don't know, because if you're making on some level, I feel like they have to know that what they're eating isn't the best or optimal. I don't
Scott Benner 31:26
know. I've talked to a lot of people. Megan, I don't always think that's the case. Like, I take your point like, you think, Well, nobody's having a handful of, like, jelly beans, and being like, this is very healthy for me. But I also don't think that they think, Hey, did you know there's, you know, I don't know, 12 tablespoons of sugar in that soda you're drinking. Like, I don't think that's the thing people know either. I think it can be in the middle a little bit, like, some of it's just, like, you know, a little blissful ignorance, like, I'll just, I won't, you know, I just, I'll ignore this, and it'll be okay, because I love the way Ho Hos taste. I really don't know. Like, I grew up in a world where this was food, it was given to me, and I don't know any different. I used a couple of examples recently, but one of them that I think is just really important is that, you know, I told Jenny, like, you know, when I grew up, there was this giant tub on top of the refrigerator. It had a scoop in it and a powder, and you'd put, like, God knows how many scoops into a gallon of water and, like, just fill it at the sink and shake it up, and you drank that, and it was just, like, pure sugar water. And like, that's what I drank, like, every time I was thirsty, that's what I had. I genuinely did not know that wasn't good for me. So, you know, who knows? Yeah, I can see that too, especially if that's just how it's presented, yeah, how it's always been, yeah. So your note here says it's great. I can't wait to hear what you want to say about this. What do you have to say about Jim bros?
Megan 32:49
Oh, my God, I forgot I wrote that. So, I mean, it depends on the level of like Jim bro. I guess an extreme example would be, there's this guy that goes to my gym. I see him at least three times a week because we seem to go for our workout around the same time, right? And he's like, super intense with his reps and stuff. And he's like, he's like, screaming and like, making all these weird noises, and like, I can hear it over my earbuds, and people are looking at him. And then he's got this, this guy following him around with like, a camera, like an actual camera, not just like a phone. Yeah, he's doing something, right? It's a camera. I mean, I I'm assuming he's probably competing, or has competed in the past, and he's, you know, gearing up for another competition.
Scott Benner 33:49
But like, you think he's just making content, maybe,
Megan 33:54
like, for himself. Somebody's walking around filming him,
Scott Benner 33:57
like, it's like, if he's filming all this and not putting it somewhere. I'm I'm even more worried now,
Megan 34:02
yeah, yeah. Like, what are you doing with it then? But yeah, so there's, there's gym bros like that. There's like, gym bros that. There's another day where I'm, like, I have one more exercise left, and it was the leg curl. And for whatever reason, there were like, three dudes just hovered around this machine. None of them were using it, and then one of them had, like, his shaker bottle on it.
And just like, this is the last
thing I need for my workout. And then I'm done, and you guys are just like, standing there, and I need that machine. Do
Scott Benner 34:38
you like, say something to them? Or do you feel uncomfortable at that moment? I did
Megan 34:43
finally, yeah. Like, are any of you using this? And they're like, oh no. And then they walked over to another machine and hovered around it. And I don't know what they were talking about,
Scott Benner 34:51
but is there a lot of what they call mansplaining going on at the gym?
Megan 34:56
I've seen it before, but not I. Well, I guess there was one time somebody felt the need to come over and tell me how to use the hip thrust machine, and I didn't really appreciate that very much. You
Scott Benner 35:12
think you were being hit on? Maybe?
Megan 35:15
No, that's thing. No, it's not that. So, yeah, the form is, I mean, once you get it, it's it's easy, and it's literally, like, how it sounds, it's a hip thrust. And he's like, I think you should do it like this. And he was, like, hyper extending. I'm like, you don't think he was
Scott Benner 35:32
hitting on you don't think he was just trying to, like, take you out or get a number or something like that, maybe. But you aren't up for that. You already have a three legged cat. You don't need his pets. Yeah, yeah, exactly. You know, are there women that are like that at the gym too? Like, very loud and boisterous? Is it a big gym?
Megan 35:52
It's a local gym. It's not like a chain, and actually they it's not air conditioned. It's kind of like an open air gym. There are a couple of industrial fans strategically placed to kind of keep air moving, okay, but today, it's like upper 80s here, and you know, it's just a couple of fans in there. So I'm kind of not looking forward to you get used to it eventually. But fortunately, the the weather here went from like 70 to like 85 in a day. And I just haven't, like gotten used to the warmer temperatures yet. Yeah, and then trying to work out in that, like it's an adjustment period.
Scott Benner 36:41
Is that them being cheap? Is that a theory about working out like that? You want it to be warmer? I feel like, like, back when Arnold was in his prime, I feel
Megan 36:51
like he was probably working out in a gym without air conditioning. And I think maybe they're just trying to be like old school. The building that the gym is in, it looks like it used to be an old, like, kind of small warehouse. So maybe it's not even, like, you can't even put an HVAC system in there. I I mean, I wouldn't know, but I'm sure it also doesn't bother them to not have an AC Bill, I'm
Scott Benner 37:21
guessing that. So we were talking to your father about about maybe getting a pump. Yeah, but I was wondering, how often do you guys talk? And how often is that talking about diabetes? Like, does he check in with you still, or do you check in with him? Oh,
Megan 37:36
yeah, yeah, I would say that we probably talk at least once a week. I'm definitely a daddy's girl, and I'm pretty sure I'm his favorite child.
Scott Benner 37:44
Well, I'm sure you are, yeah, yeah, yeah. So yeah, we talk regularly and pretty frequently. And have you ever had, I don't know what to call it, pushback about these conversations, like, even when you were younger, you ever have times and you're just like, I don't want to talk about diabetes. About diabetes. Or have you always had that relationship with Him?
Megan 38:06
We've always had that relationship, I think just because, you know, it's a common experience between the both of us. And like, he can't talk to my other siblings about diabetes the way that he can talk to me about it. And same thing, like, they just don't get it
Scott Benner 38:23
enough context, yeah, yeah. And so you guys are, I hate to say diabetes, because that sounds goofy, but like you guys are, like, you have, like, a little, a little club about diabetes, yeah, yeah, to get a secret handshake, that'd be awesome. We should, yeah, I don't know why you haven't thought of that already. I know, do you let other family members who have type one into this group? Like, do you have, like, a group chat where you talk about type one or anything like
Megan 38:46
that? No, my aunt, that's type one. She was misdiagnosed. I as Type Two for, I don't know how long of period of time it was. She just got her diagnosis, I think within the last like five years. So she's relatively new to it. And then my grandma is type two, and she's like 90 pounds and 88 years old. Her a 1c is kind of just sat at like 5.7 Okay, for the last
Scott Benner 39:15
chugging along, doing okay. Yeah, yeah. In your note, you just said resilience. You didn't say anything else about it, right? And I'm wondering, I mean, you thought to put it in here. You have big thoughts about, you know, what this life has taught you, or things you've taken from it?
Megan 39:32
I mean, I think a lot of it, just like I said before, comes from diabetes, like, you know, you you have a choice, you can take care of it or you don't. I think it's just much easier to choose to take care of it. And you know, it's, it's not a cake walk. And that's definitely taught me some things, because life isn't always a cake walk either. You just have to keep going. Going,
Scott Benner 40:00
can you like, think of specific times when it was harder than others and you had to push through? Or has it always been like, because, you know, some people might be like, Well, yeah, our dad has it too, like they have a connection, like she gets support from that. Like, it might be easier for you to say, like, this isn't that bad, yeah. Has there been moments where you're like, I mean, you mentioned college, but have there been other times?
Megan 40:22
Yeah, probably college. And then I was like 24 I happened to be walking around a pool. I stepped on some kind of rock on the bottom of my foot, and it made a little scratch on my heel. I didn't think anything of it, but it ended up getting infected, and I had to be hospitalized for that. That was awful. And obviously that was at the same time the, you know, I wasn't necessarily in the best control with my diabetes, so that that was day 1c
Scott Benner 41:01
time. Yeah, it was okay, yeah. So, just for clarity, for people, you're not saying you have neuropathy and you couldn't feel the cut, it just it didn't heal and it got infected.
Megan 41:09
Yeah, yeah. It like for a long time, it didn't seem like it was getting worse, but it also wasn't healing. And then one day, I just spiked a fever. And you know, my foot was so small and I couldn't see my ankle bones anymore, so I had to be admitted, and I was in the hospital for four days that had to be debrided, and I was on IV antibiotics the entire time I was in the hospital, and then they sent me home with home health, and I had to be on IV antibiotics for the next Four weeks for it to clear
Scott Benner 41:41
up, and you attribute that to the higher blood sugars,
Megan 41:44
yeah, I think the reason it took as long as it did to heal and then the fact that the infection ended up, it was starting to disrupt the tissue, like surrounding my bone, So it got pretty deep.
Scott Benner 42:00
Okay, jeez, that's scary. Oh my gosh.
Megan 42:03
Not that I didn't take it as seriously as I should have, but I just didn't understand the severity until, like, after I was out of the hospital and I was still on tethered to an IV pole at home,
Scott Benner 42:16
did that, you know, quote, unquote, scare you straight? Or did it take more than that?
Megan 42:20
Yeah, yeah, that was a big wake up call. Like, I don't want this to happen again. I don't want to be like, the stereotypical, like, diabetic without a foot or toes, and like, like, I don't want to be that person and like, I'm better than that. Like, I know what I am supposed to do. I know how I'm supposed to do it. I just like, I need to do it. And, you know, basically, grow up.
Scott Benner 42:47
Yeah. Do you have any context, backward looking context, about why a person might just, for years, stop doing the thing they know they're they should be doing?
Megan 42:57
Burnout would be one. But I also think there's probably, like a fear component to it, like, you know, I'm afraid, you know, if I do this, and you know what, if I still fail, or that's a good question, yeah. But I think for me, at least, I feel like it was burnout and probably some immaturity,
Scott Benner 43:22
okay? And then you have the foot thing, and then you say, Oh, I don't want to be like this. And then you just kind of like, it's like everything else in life, like, you get more mature, you get more context. You make different decisions,
Megan 43:33
yeah, yeah, looking, looking back on that, I'm like, Why did I just not go to the doctor when, you know, like, a week after it happened, once I realized it wasn't healing
Scott Benner 43:43
right before you stepped on that stone or whatever you stepped on at the pool. If I would have said to you, hey, the management that you are currently employing for your diabetes is such that if you get a cut on your foot, you're gonna end up in the hospital with a massive infection that almost gets to your bone. Would you have believed that? Or would you have said, No, I'm doing fine. I don't
Megan 44:02
know if I would have believed that at the time, yeah, yeah. Because at the time I felt like, yeah, you know, it's not great, but I'm not it's not 13, it's nine, yeah. So I kind of tried to rationalize it that way, like, Yeah, I know I can do better, but it's not terrible, or I'm not as bad as, you know, some people.
Scott Benner 44:24
It's the rationalization that I always hear in people's stories like this, no matter what, it's sort of like, well, yeah, sure, but it's not like this, or it could have been that, or I should have, you know, I Yeah, sure, I didn't do that, but also I'm okay. And then you get that kind of reinforcement every day, when you wake up and you're not sick, right? You're like, yeah. Like, you know, they say this is bad. My a one sees 10, but I feel fine, yeah, yeah, right. Like, that's maybe they're wrong. Maybe I can live like this. Maybe it's just not something that I'm being forced to look at. Yeah, yeah. Exactly that thing a lady told me just the other day I was interviewing her about, like, you know what forced her to look at? Her care was like, she had a miscarriage, and the doctor just, very clearly was, like, your blood sugar is too high. That's why the baby discard, you know? Yeah, it still doesn't like, it doesn't flip a switch. I have to tell you, the human psychology I'm just like, I'm going to be endlessly enamored with forever and ever. I think, like, you know, like, I put up an episode today, and I just, I found myself thinking, like, I'm gonna go online and tell people about it, because it's so fascinating to listen to this person, you know, talk about how her mom hid her diabetes from the family and then passed away very early, probably because she wasn't taking great care of herself, because she was very focused on nobody knowing, like she literally thought her kids didn't know she had that type one. And then, but, yeah, right, it does seem crazy, right? But then I'm talking to the, you know, the woman who's now an adult, and she didn't think it was that crazy. And then you start picking through her life, and you realize she hides a lot of things from people, and, you know, you're like, Oh, this is, like, a little familial. Maybe it's a little like, you know, just the psyche of the family, or whatever, like, burned in, who knows exactly, I don't know, like, God knows how she got there. But every story she told ended up being a story of how, like, they hide things from each other. And then you can hear her as she's, like, talking through it, going, Oh, yeah. Like, that is another example of that. And I make it just makes me wonder, like, it's months later, is she, like, out there actively trying not to do that, or is it just have such a strong hold on her that it went, you know, it goes right back after you stop talking about it. Yeah. Anyway, that part of the human mind and the experience. I don't know if I'll ever hear an answer, but it's fascinating. To talk about and to wonder about, yeah, well, I think when you
Megan 46:49
you grow up that way, that's what you're surrounded by. That's all you ever know. I think it takes you know, I think stepping away and looking at the way other people, you know, interact, and how they behave, and I think that makes people maybe start to question, like, in what I you know, is my behavior normal, or am I the weird
Scott Benner 47:14
one, like, and it happens to everybody. I mean, if you're listening right now and you're thinking like, oh, Scott's, you know, speaking from like, it doesn't happen to him and his kid or whatever, but it happens. Of course, it does. Like, you know, my kid doesn't listen to me, just like every other kid doesn't listen to every other parent. I hear people say all the time, like, oh, Arden, so lucky you have such a grasp of this blah, blah, blah, you're so willing to help that doesn't change anything. And by the way, the person that wrote me that note, if they were 20 years old and had diabetes, they wouldn't listen either. They'd be like, ah, that guy is my dad. He doesn't know, like, you know, like, that kind of thing. Like, I've given people advice about, like, saying, like, very specifically, like, saying to a kid, like, Look, if you're having trouble right now, you can offload some of that to me. I'd be happy to, like, like, shoulder some of this for a while. Tell me what it you know, what? What of the things that are burdening you right now? Do you think would allow you to reset and get out of this feeling like, if somebody else was handling it for you for a while, and I've told people, like, I would go to my kid and say that, like, say, look, you're struggling with your diabetes right now. That's fine. Like, you know it happens. Let me help a little bit with this piece. Let you reset a little bit. I've said that to Arden recently, like, you know what I mean? Like, is there something here that I can, that I can help you with? She's got a lot going on, you know, and like, you can, like, she's quiet and listens, but she doesn't, like, turn to me, like, it's a, you know, like, a Hallmark movie, and go, Father, thank you for that wonderful offer. That would be great. Here's the thing that I think would help like it's nothing works that way. No, it doesn't. I think one of the most interesting things about diabetes type, one especially, is that it it speeds up your timeline, such that it gives you an in the moment. Look at some of the things that happen in a life without diabetes stretched out over decades, aging, for example, right? Like, or the decline of health, it's an easy one, right? Like, you can get up every day and smoke a cigarette, drink the wrong thing, have the wrong food, not exercise. You could go 2030, years and think, I'm beating this thing. And even if your body starts to decay in certain ways, our minds are set up so that we we ignore that, and we press on, right? We're resilient. We keep going. Then one day, you're 65 and I don't know, you know what I mean, like your kidney falls out of your side, or something like that. And the doctors like, oh, you know, that's because that thing you've been doing for the last 30 years, right? Yeah, but in diabetes, type one really, especially, don't do the thing you're supposed to do, you're going to get a pretty what would in normal life be, a 30 year result. You're going to get that result much more quickly. Yeah, and I think that experience is sprinkled about diabetes in tons of ways, in interpersonal. Ways and psychology, depression, happiness, everything gets sped up a little so that you can kind of see the results sooner than you normally would. Yeah, and I think then it's up to you, the person living that life, to either decide like I'm going to use this as directional and say to myself, Okay, look, I know if I do this, this and this and this, 30 years from now, that thing falls out, but now it's happening a year from now, or six weeks from now, or three months from now, when I get my a 1c again, I'm going to take that information, not feel burdened by it, but feel lucky to have it make adjustments, do the thing, or you're going to be in that situation where you say to yourself, well, you know what? This is unfair, and I give up, like, I think that it sort of goes like, one way or the other sometimes, and then some people give up, but something shocking happens to them, and they're snapped out of it, you know? Yeah, some people just find the rhythm, and they just ride that rhythm right till the end. So I don't know, I don't know why I said all that. That's all I had to say. I'm done. Now, is there anything that you'd like to respond to there, or anything else you'd like to talk about? I mean,
Megan 51:11
I think what you said is pretty accurate. I mean, for me, it was, you know, it was the whole foot thing, like, okay, I can keep doing what I'm doing, and you know, the results are probably going to be similar to this or worse.
Or, you know, I can put in
some effort and get my a 1c to a better place, feel better, be happier, be healthier. And you know, it might not always be the easiest way or the easiest choice, but it seems like it's worth it to at least try, then to just completely give up, and, you know, have a poor quality of life or outlook on life, because I just don't want to do the things that I am supposed to do, right?
Scott Benner 52:03
And those things, by the way, are bringing you benefits in the moment as well. It's not just like you're not just avoiding the 30 year problem. Yeah, you know, you're probably seeing less insulin resistance because you're so active, right? You eat a certain way, so you probably don't see a ton of like, crazy spikes that you're fighting with for six hours that end up with a low at five o'clock in the morning like you probably avoid a lot of that stuff by by living the life this way. Is that right?
Megan 52:27
Definitely had to dial back my basal rate and stuff when I started adding the cardio in, and then, obviously, with the reduction of calories, there's less of a need for insulin just because of that. So there are definitely benefits, and it definitely makes aspects of diabetes easier, just by, you know, coupling it with activity and correct calories for for my body,
Scott Benner 52:55
yeah, do you not work out on the weekends? Or, like you said, five days a week. When do you not work out?
Megan 52:59
I try to do Monday through Friday, like everybody else, I struggle with motivation sometimes. Yesterday I didn't go, so I'll go today through Saturday. I prefer to, like be finished, like Monday through Friday, and then have Saturday and Sunday to do whatever I want. But yeah, no, however, I need to fit in five days. That's what I'm going
Scott Benner 53:23
to do. How many days do you have to miss before you see in your insulin needs that? Oh, I'm getting a benefit out of this activity, and now it's gone and I'm needing more insulin, or I'm having other issues. Is there a gap of time where it starts to turn on you? Or,
Megan 53:37
yeah, actually, that's a good question. It's probably around day three or day four. Like, if I've not gone to the to the gym, not done anything active, including, like walking steady state cardio, like, if I haven't done anything in three or four days, I'll start to see my blood sugars rise.
Scott Benner 54:01
Yeah, the activity is super important, especially Yeah, for this, yeah, no, I agree. I appreciate you coming on and talking about all this. Can I ask you, like, what motivated you to ask to be on the podcast?
Megan 54:12
Well, because I've obviously listened before. I don't think I've listened to every single episode.
Scott Benner 54:18
Why? No, I'm sorry.
Megan 54:21
No, I haven't, but no, I've, I've listened to it consistently, probably for at least the last couple of years. And I just think some of the stories on here are so interesting, and the perspective of other people, and you know, some of their other stuff going on, and how they juggle diabetes and their life experiences. And I don't know, I don't think I'm particularly interesting, but I thought if me sharing my experiences and some of my story could help somebody and they're listening to it, then why not? Oh,
Scott Benner 54:58
that's awesome. I appreciate. Oh, that's i. Some of the best episodes come by. I'm sorry that you don't think you're particularly interesting. Should I call this episode not particularly interesting? You think that'll really grab people's attention?
Megan 55:08
Yeah, you're Jim bros. Well,
Scott Benner 55:12
you know it's funny, like, I'm always entertained by the idea that people are like, I know this isn't good. I actually, I have a note from the other day. I know that. I know our conversation was terrible. You don't, don't feel any pressure to use it. No, that happens like, more frequently than you would think, like, a note comes from somebody, and I'm like, I responded back. I was like, I just said, like, You're being silly. Your episode was awesome. Like, stop it. Yeah, I just, I make the same point over and over again to people. I was like, you listen to this podcast. You've heard stories that really helped you? Do you know those people also thought their story was not interesting and not valuable? Talking about human psychology, like, what is it about people that does not allow them to just believe that their actual story has value?
Megan 55:52
You know, I don't, yeah, interesting. That's a good question. Yeah,
Scott Benner 55:56
I don't know what's wrong with us. Trust Me, I'm Trust Me, I'm lumping myself in with everybody else. It's fascinating to me. Nobody ever jumps off and is like, wow, that was awesome. I can't wait for people to hear that, because I really brought it.
Megan 56:11
Okay, good. I'm glad I'm not the only
Scott Benner 56:13
one. Yeah, no, trust me, this is a pretty common feeling. And I thought you were great. Like, I really think this will help people. And, you know, there's plenty. I mean, especially now while, like I said, talking more about nutrition, you know, Megan, like, if you've listened to enough of the podcast, I think one of the main things that I focus on is that I don't think I'm in charge of how people eat, nor do I think that anything that I or anybody else says is going to like, change somebody's opinion about how they're eating, right? And, you know, just because you grew up with a bucket of sugar water in your refrigerator that somebody told you was juice, you know, like, doesn't mean that 20 years later, if your kid gets type one diabetes, they deserve to have an A, 1c in the 10s, like, so my thought here is everyone listening is going to have more success health wise, if they understand how insulin works. Yeah, that's my base goal. Like, I just want you all to understand what your basal does. You know how to Pre-Bolus? Like, you know what different glycemic loads and impacts. Do you know what to do when you find yourself in the mall and you're like, I'm gonna eat a Cinnabon? Do I think you should be running around eating Cinnabons all the time? I do not. But if you go to the mall and you're like, I'm getting a Cinnabon, first of all, you should know there's like, 160 carbs in that thing. Like, that's not even a thing people would guess. You know. And you should know how to, like, attack it without making yourself super low later, or, you know, giving yourself a 400 blood sugar that you're screwing with for the next six hours. Having a Cinnabon shouldn't put you in that situation.
Megan 57:52
Yeah, it shouldn't ruin your
Scott Benner 57:55
day. And at the same time, like when you start out telling people like, this is how insulin works, apply it to your eating style. I mean, the rest of that is, you know, no lie, ate a little better and thought more about your micro, macro nutrients. And, you know, making sure that you know your your nutrition was, you know, a little more spot on. At least this whole diabetes thing gets a lot easier.
Megan 58:21
Yeah, no, it really, really does. You said Cinnabon, and for whatever reason, it made me think of my 600 pound life. Do you watch that
Scott Benner 58:29
show? I've seen it like once or twice, not a whole, not all the way through, I but I know enough to know what you're talking about.
Megan 58:35
Okay, yeah, oh, it's just crazy. Like, the amount of, just the amount of food that they eat like, it's, it's just crazy. I we binge watched that show me my boyfriend. Well, listen,
Scott Benner 58:47
I can tell you that Jenny and I, right now are making a series called Bolus for where people just sent in different foods they don't know how to Bolus for. And so, like, Jenny and I are, like, doing like, 10 Minute Talk throughs on everything. But we're also, like, you know, we're pretty fresh into it. We've only been doing it for a couple of recordings now. And mainly we're getting through like, cereal, like Cinnabon, which is why it's on my head right now, you know, like, that kind of stuff. Like, eventually we'll get to, like, you know, broccoli and stuff like that. It's really something like, I've never looked to see how many carbs are in a Cinnabon before. Or, you know, like, it's not a thing, like, it's not a thing we've ever run into. I've never thought about it, but I think top of my head, if I'm remembering the recording the other day, was literally, like, 165 carbs and, like, in a stunning amount of a stunning amount of fat, and, yeah, and just, you know, and all and way more salt than you would think,
Megan 59:42
yeah, yeah. Salt isn't everything well.
Scott Benner 59:46
And then Jenny starts talking about, like, look, you know, there's that magic mixture of sugar, salt and fat that just makes your body go like, Oh, my god, yeah, yeah. Because, like, I mean, listen, I bake a lot. You do not need a lot of salt when you're baking. King. But I guess somebody figured out, like, if there's this much fat and this much sugar and this much salt, you're gonna go crazy when you're eating this
Megan 1:00:07
fat, sugar, salt, and, you know, you've seen those, like, I think there were snack wells, I think the green box where it's, like, zero fat, but then they dumped more sugar in it. Or, like, if something has no sugar, it has a bunch of extra fat. Like, you can't take both out. You have to, you know what I mean, yeah, it
Scott Benner 1:00:31
ends up being cardboard. Nobody wants it, yeah, yeah. I bring up all the time around here, there's Italian ice places. And, you know, always a huge sign on the front that says fat free. And I'm like, Yeah, but your body's gonna take that sugar and store it as fat. Exactly, yeah, it's not in there now, but it's gonna end up as fat. Yeah, you know, it's just marketing. And I think the same thing with the, you know, I'm not even picking on Cinnabon, but like, you know, they're trying to make a thing that when you bite into it, you're like, I'm very willing to give you $10 for one more of these, like, you know, like, that's what they're trying to accomplish. So I don't think that we think about food that way. I don't think that we think about like, this is engineered to like, you know, like snooker you into having more, or to feel like, almost like, you know, having an addictive like, responses to it. And so, you know, so we bring it up, and hopefully people will be interested in it, and, you know, not yell at us for telling them how to eat, because I certainly don't. I mean, it's your life. I am a live and let live person to the end of the to the end of time, right? Like, I'm, I'm for your personal freedom. And if your personal freedom runs the gamut, it's not for me to judge, nor do I even have an opinion about it. Like, so like, do whatever you want. But you know, just like with the Bolus thing, I just want you to know what you're like, what the reality of what you're of what you're involved in is, and then after that, you're an adult, you do whatever you want. You know, like, yeah, I don't care. I'm happy for you if it's going well and if it's not going well, and you're looking for something, and then you find it here. I'm happy for you, too. And if you want to eat a Cinnabon every day, and, you know, go down in a blaze of glory. Like,
Megan 1:02:06
yeah, eat your Cinnabon. Eat your Twinkies. Or don't, like, go for you.
Scott Benner 1:02:10
Like, go if that's you, if that's you, that's you. Like, I don't have like, I have no problem in the world with that, you know, listen, it's, um, you know, it's a way online that people make content that's very popular, but they just, you know, they just put you into a different camp, and then get people to fight against you. So they say, you know, somebody's like, you know, I'm a gym person. I work out. Everybody doesn't work out. Doesn't care about themselves and their assholes and blah, blah, you know, like, and what do you get? You get a bunch of people who agree with that, and then, then, now you have an online community, and then you can charge them $20 a month or something, right? Like, and then there's the other people on the other side that are, like, That's bull. Like, I can live any way I want. Like, you know, the right way to eat is vegetarian, but and then they do the same thing, and then they market to you and sell you stuff and like, I know you don't think that's what's happening to you, but trust me, that no one who's talking to you about like keto gives a about keto. They give a shit about building a community that they can make money off of or sell you something or whatnot. So exactly, trust me, I'm not selling you anything. I pay for this podcast the old fashioned way advertising. I get somebody else to pay for this so I can sit here and do this. You all can go do whatever you want, just even if you don't buy anything, just click on the links once in a while. Everything's great. Then, you know, it keeps me It keeps me going, and keeps these conversations happening. Anyway, Megan, any last words?
Megan 1:03:27
For whatever reason I had cereal and protein shake on my mind, I might send you and Jenny in that for the
Scott Benner 1:03:33
Bolus four series. Yeah, send it over like email to me.
Megan 1:03:37
Okay, yeah, because I've said it's such a pain in the ass to dose for I feel like I do the Pre-Bolus correctly, and I know that it's high protein, high carb meal, so that factors in as well. But, like, I just can't seem to get a handle on it. And it's, like, one of my favorite, like,
Scott Benner 1:03:53
breakfast specific, like, down to like, you know, brand names and stuff like that. Okay, and send it over. And I will, I'll add it to the list. I absolutely will just email it to me. Okay, yeah,
Megan 1:04:04
definitely. No. It was awesome talking to you. I was a little bit nervous. It was like talking to a famous person.
Scott Benner 1:04:08
That's ridiculous. Let's, let's stop being silly. Okay,
Megan 1:04:13
it does. It feels like that. It's weird. Yeah. Well, after
Scott Benner 1:04:16
this, I'm going to take Arden to an appointment and then come home and do some laundry while I'm editing and making social media. So I, trust me, I'm not famous. Listen, we all learned how Gene Hackman died recently. He's famous, and I think he got eaten by rats. So, like, you know, like, fame's not, I don't know. I don't think so. I think, I think I'm I think I'm conflating something. Hold on a second. You want to find out real quick. I believe. Hold on a second. Gene Hackman got eaten by rats. No, he got, like, a, first of all, he's 95 I didn't know he was that old. Yeah, like he was. He's one of those guys who's like, 20 years ago, is like, I can't act anymore. And I was like, oh, but you're great. Okay, hold on a second. He. The actor had a biventricular pacemaker. He had Alzheimer's, maybe neurodegenerative features consistent with Alzheimer's. The autopsy, excuse me, autopsy showed severe a throw salistic and hypertensive cardiovascular disease, I think. But it's something weird about how he Oh, a toxicology report found trace amounts of acetone and Hackman system when he died, the solvents used for chemicals also product of a diabetic and fasting induced ketoacidosis. Hold on a second. That's not what I know, because his wife died too at the same time, but she was much younger than him.
Megan 1:05:39
Oh, okay, I remember, I kind of remember hearing about this. Now,
Scott Benner 1:05:43
how did Gene Hackman wife? There's something about like they found,
Megan 1:05:49
like rats were eating them after they died. Yeah, she
Scott Benner 1:05:54
No wait. She died from Hantavirus pulmonary syndrome I got, I'm telling you, this has got something to do with rodents. Yeah. Rodents. I don't know. I feel like we're watching Ratatouille, but, like, a really bad version.
Megan 1:06:07
That's so weird, because I just watched ratatouille last night. Why would you
Scott Benner 1:06:11
not awesome movie. It is so cute. Like, No, trust me, he wasn't well. He had, like, extensive heart disease. He had other things. Why can I not find this all of the dog was dead too.
Megan 1:06:24
Oh, that's so weird.
Scott Benner 1:06:27
Okay, how did his wife get Hantavirus? Hantavirus are primarily carried by rodents. Humans can become infected after exposure to urine, droppings or saliva from an infected rodent. So, so anyway, I don't know if that's what ended up happening, but there's a lot of talk about that, and it just made me think, like they were so they were older, and, you know, there was they obviously had, like, cleanliness issues in the house. And my point is, that's Gene Hackman, and he was famous. He really is famous, and still his life was not that exciting. That's my point. So imagine me and how not exciting my life is. Was my point? If Gene Hackman can have hunt the virus in his house, imagine how crappy my life is. This was my point. Megan, it took me a while to get to it, but that is my point. So I mean, you
Megan 1:07:15
got there, but calling me famous is
Scott Benner 1:07:17
ridiculous, is what I'm saying. Sounds
Megan 1:07:20
like he died from like the plague, is that the same thing like the bubonic plague, is
Scott Benner 1:07:25
that you and I together don't know. I can tell you that much for sure. I just sounds like there was, like they had an infestation of con some kind of their house. And I mean, she it sounds like, who knows exactly what happened? They're all dead. They can't even
Megan 1:07:39
ask the dog. I know, yeah, and then the poor dog too.
Scott Benner 1:07:43
They say a dog. When a dog dies, it takes forever for them to start eating, like a corpse in the house, like, if you die, your dog won't, like, start eating you. But if the dog's trapped, that's good. If you're if the dog's trapped there long enough, it eventually will, but if you die near a cat, they're gonna start eating your eyes out almost immediately.
Megan 1:08:03
Oh yeah, cats are dicks, like, they're like, they're not like dogs like, they're just, they're just whole. Sometimes,
Scott Benner 1:08:10
yours will take a little longer because it'll, I mean, it's gonna have to hobble to you, but that won't take much longer. So, yeah,
Megan 1:08:15
I know he'll have to come over with his three legs. And, yeah,
Scott Benner 1:08:20
all right, hold on a second.
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