Scott Benner 6/29/23 Scott Benner 6/29/23

#942 Get DiabetesWise

Korey Hood, PHD has type 1 diabetes and is the founder of DiabetesWise.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 942 of the Juicebox Podcast.

Quarry hood has type one diabetes. He's also a professor and health psychologist at Stanford University. And today, the creator of diabetes wise is here to tell us more about it. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan, or becoming bold with insulin. If you'd like to save 10% On your first month of therapy, you can@betterhelp.com forward slash juicebox you can save 35% on your entire order at cozy earth.com with the offer code juice box at checkout and of course, ag one get yourself some delicious ag one at athletic greens.com forward slash juice box and when you use my link, you'll get five free travel packs and a year supply of vitamin D with your first order. After you're finished listening to Cory if you're interested, check out diabetes wise.org.

This episode of The Juicebox Podcast is sponsored by the contour next gen blood glucose meter. Learn more and get started today at contour next one.com forward slash juicebox. Actually just you can get more than started you can actually buy the contour and the strips right at that link and they may be cheaper in cash than you're used to paying for your current meter through insurance and the contour next gen is super accurate and offers Second Chance testing. today's podcast is also sponsored by Omni pod now Omni pod offers the Omni pod five if you're looking for an algorithm, or the Omni pod dash, if you want to go old school, either way, you're going to be to Bliss and carefree with the Omni pod Omni pod.com forward slash juicebox links in the show notes links at juicebox podcast.com To contour Omni pod and all the sponsors.

Korey Hood 2:27
Hi, I'm Corey hood. I'm professor at Stanford University psychologists. I'm also a person with diabetes. I'm glad to be here to chat with you a little bit about myself and diabetes wise and whatever wherever this

Scott Benner 2:41
leads are nice. Well, it's nice to meet you, Cory. You've type one.

Korey Hood 2:46
Yeah, I do have type one diabetes,

Scott Benner 2:48
how old were you when you were diagnosed?

Korey Hood 2:50
So I was diagnosed in 2000. So I was I was 26. So I'm going on, I'm on my 23rd year, I have kind of an interesting diagnosis story, which was that I had started working my my PhD. And when I when I came into the Ph. D program, I had to pick some program and I just happened is one of the only ones that was available is what was in diabetes. And so I was interested in psychology and health but not didn't really have much of an interest in diabetes, but started that work. And then within six months, I was diagnosed myself I had, you know, I had lost like 30 pounds and, you know, had all the classic symptoms. So, so yeah, it was an interesting experience, right, as you're starting that work, but

Speaker 1 3:43
it sounds like all the circumstances of your life are pushing you in that direction. Yeah, exactly. Exactly. What did you have your undergrad in? And what were you hoping to build on? But you know, I mean, when you when you set up that that PhD program, what's your goal?

Korey Hood 4:00
Yeah. You know, I was interested in I think I was just interested in psychology as an undergraduate. And that was what my degree was, and it was in Bachelor of Science in Psychology. And I was interested in, I don't think I had a specific area that I was really interested in, but I was just, I thought that it was really, it was fun to understand why people do the things that they do. And so to understand behavior and thoughts and then I think as I explored it a bit more, I thought more and more about health and how does the what is the psychology of health and so as I started work on my PhD, which is in clinical and health psychology, it was you know, it was really just what something at the intersection of health and, and disease or, you know, the psychology side of it. And then as I worked in the field, I think that my interests have also evolved into understanding how this technology play a role in this and how we think about health and the things that we can do and the benefits of it. Sometimes the drawbacks, and that's ultimately what has led us to work on diabetes wise and other programs where we're trying to understand the intersection of how someone thinks about health and themselves and technology and devices. And obviously, diabetes is a huge part of my life, personally and professionally.

Scott Benner 5:30
What do you find? I mean, you're, you're diagnosed as an adult, right? So what did you find to be the most difficult in the early going? And what is sticking with you? Later?

Korey Hood 5:43
Yeah, it's, I think that what was, even though I had worked in diabetes, I, you know, I think you feel a little bit like this is, you know, this is this is outside of me, this is not part of me. I get to go home in the evening and not, you know, check blood sugars, take insulin injections, do all those kind of things. So I think that getting used to how much work it is, was probably the hardest part, just thinking about it. And it'd be on your mind all the time. And then I think, as I've gone along in the 20 plus years, I think that there have been different times. But they've all they've always been driven a little bit by devices and technology, you know, in terms of, do I want to do this? isn't accurate enough? Am I getting burned out by using it? Everybody says this is the best thing ever isn't really the best thing ever. And so I think it took me a little while to I don't know, maybe find my comfort place with technology and devices and all that as we kind of moved along with the, with the diagnosis and then just having diabetes. Long term.

Scott Benner 6:56
I remember. Right off the bat, Arden was just diagnosed for a couple of days. And this is going back now. I mean, she was two and she was diagnosed, she's about to be 19. So it's 17 years ago. And I can as clear as day picture, the nurse coming in with this little meter that she said we were going to take home with us. And then she had a cart with this giant meter from the hospital. And she's like, look, I'm you know, I'm going to test her for her charts here. And she tested with the big meter from the hospital. And she goes, go ahead. Now you test here with this meter. And the numbers were so different than each other. And I don't mean within like 20% tolerances. I mean, like, it was shocking. And, and she's and I said, Well, I you know, I'd prefer like that meter. Why don't you let me have that one? Because that thing costs $10,000. You can't have that belongs to the hospital, you're going to use that when I said well, which ones right? And that was it. Like right there. It was like frozen. You know, I thought well, I don't understand like, how am I supposed to do this? If you know, yeah, it is an odd thing to say that. It doesn't matter. Like I don't know how that like it eventually it kind of just I don't I've never been able to put this into words. It just I mean, meter technology has obviously gotten better over the years. And Arden uses a much more accurate meter. But back then. I don't know. It just it was never an issue after I let go of it. But it was really difficult to let go of.

Korey Hood 8:21
Yeah, no. And I think one thing that that brings up, as I was thinking about, you know, we talked to a lot of people as we were in both research, and then that as we've created diabetes wise and other projects, but the one of the things that I think a lot of people that have been diagnosed longer than maybe 10 or 15 years, they talk a lot about this kind of feeling of just flying blind, like having no idea what their glucose might be, because they're getting either different readings or they're, they don't have access to one it's a it's when I've had that it's really kind of an unsettling experience when you're supposed to be doing something or someone tells you that you're supposed to do it a certain way, but you don't have the actual equipment to make those decisions.

Scott Benner 9:14
I just got done speaking with a 64 year old woman who's had diabetes for like 50 years. And it was interesting, she tried to pump and she had some issues with the set and so she got away from it. And even though her a one C was almost a full point lower on the pump than it was on MDI. She didn't live through a time when even the insulin and the way people thought about it and technology would allow you to make adjustments to your blood sugar after you ate or something like that. So she didn't see that as a as a concern. She She was well aware of that or a once he was lower that she was doing better. It was healthier. She said it was a little more work, but it wasn't enough to make her feel But I'll persevere with the pump or even check on another one. If maybe this insulin pumps not right for me, I'll try a different one. But she spoke about her Dexcom. Like it was just irreplaceable. Because it actually, it actually fixed a problem for her. That scared her horrible, horrible life. She wasn't scared of a six, seven, a one C, she thought that was terrific, even though the pump was giving her a six. But not being able to know she was low. That meant like the world tour. It was just interesting to me how she embraced one side of it, but didn't care so much about the other side, until I realized that this is just the perspective she grew up through, you know, anyway, it's interesting. So yeah, so diabetes wise, is what we're How does it start? Who is it? What is it trying to accomplish?

Korey Hood 10:52
Yeah. So we started, we started diabetes wise, about five years ago. And we, what we were realizing as we looked kind of the landscape of devices, and technologies was that there wasn't really a place you can go to that had, you know, everything, all the different devices, all the different technologies, what you had to do was you had to go to one device manufacturer website and compare it to the other device. You know, there wasn't really a place where you could do a lot of those comparisons, and get it some of the things you're talking about, which is what are some of the features that people are interested in? What are the what are the some people are interested in the actual specs of how accurate one is versus the other in terms of CGM. You know, which ones have to been which ones don't on the pump side. And so we realized we needed to create something that could could fill that void. And then we thought it was also important to do it in a way that, you know, wasn't branded or wasn't biased toward one or the other. And that's why we sought funding from the Helmsley Charitable Trust so that we could be you know, we certainly have a bias that devices and technologies work really well. But we don't have a, I don't have a bias toward which one I want you to use, I just want more people to gain access to it. And so and I think that that aligned with with their mission, and also, you know, obviously sitting at Stanford, you know, the the idea is to promote more awareness and education just through one of the missions of the university. And so, so we really tried to create something that could be as untethered to device manufacturers and technologies as we could but offer a, you know, a true, you know, unbiased view of what these different technologies have to offer.

Scott Benner 12:50
So did you do a an independent study of each device to give I mean, so basically, I don't want to dumb this down, because I'm on the website. That's obviously more than what I'm about to say. But it's an impartial review site for glucose monitors, pumps, meters, that kind of stuff.

Korey Hood 13:09
Yeah, absolutely. And, and I think that one of the things that, you know, I think that everybody's gotten used to this, or at least I have, I think many other people, you know, when you search for something on Amazon, and it says, What are other products, like the one that you're looking for? And so we wanted something that was able to, you know, for example, you could compare the Dexcom g7, to the Abbott libre three, you could compare it to Sensi on it, you could you can line those three up. And you could say, how are these? What are the what are the features? What are the priorities, what and then the part that we added, it gets to your question about the independent work on each one, we reviewed all of them, we don't give them a value, we actually decided to stay away from us giving them a review, you know, four out of five stars or whatever it might be, but we but what we wanted to do was really get to know each of those devices. And so we actually have a lot of people on our team that have diabetes themselves. We have, we've run focus groups, you know, studies to really get at what people say. And so one of the other parts of the website includes, you know, wisdom and stories and quotes from people about what their experiences have been. And not all of them are positive, you know, we're not, we don't try and sugarcoat it. So

Scott Benner 14:36
no, I mean, I always say what works for you is what's best. Yeah, I mean, that's just sort of simple. If you if you abhor tubing, then you're looking at an omni pod if you don't care about that then you know when I don't know the inset works better for you with handle them than right on if your insurance covers metrics, like you know, do what works is it's always been my my feeling But who who pays for this diabetes wise? Like you said you went to Helmsley. But is that the only funding it has?

Korey Hood 15:08
Yeah. So right now the so we've had funding from the Helmsley Charitable Trust was so since 2018, specifically on diabetes wise efforts. And then before that we had studied funding to do projects where, you know, we would interview, we have one project where we interviewed 1500 People with type one diabetes, about the reasons why they started and stopped CGM. What makes them go off? And it's to your point a little bit earlier about the 60s something, you know, that that you talked to, you know, we heard a lot from people that, you know, it's for worries and concerns about hyperglycemia or for other things. And then so, so we've had funding from them. So right now, all of the funding to support diabetes wise, and the the HCP side of it, diabetes wise Pro comes from the Helmsley Charitable Trust, we sit at Stanford. And so, you know, Stanford helps us have an ability to have different computing programs and things like that, but Helmsley is the one who supports it.

Scott Benner 16:18
So for a regular user, they can use the website for free, but there's a pro side is that is that? Is there a fee for doctors to use that?

Korey Hood 16:27
No, both both sites are free. So diabetes, ys.org is for people with diabetes, but anybody can look at it. It's all free. There's no part that there is nothing that's unlocked by having a subscription or anything like that, we don't have that. And then on the pro dot diabetes, Whiteside org site, the HV HCP side, it has some some similar features in terms of being able to compare different devices look at a device library, but the pro site has a prescription tool where a provider but a personal diabetes could also do this, where they put in, what their plan is, what device they're looking for, where they live, and then it'll spit out whether or not you need prior authorization to get your device, and then it'll spit out. You know, who provides this? Because I mean, you know, from from doing this, I think he said 17 years, you know, there's, you probably had five different DME companies or pharmacies in the last like five weeks. So it's this kind of experience. So, so also trying to give people information about prior off, do you need it? If you do, where are you going to get it? And so we tried to make that as easy and as simple as possible to kind of simplify the prescription process. Well,

Scott Benner 17:55
while you were explaining that I checked to see if a Dexcom G seven was available. I mean, I know it is in New Jersey with my insurance, and it came right back with an answer. So let's go That's great. Yeah. That's wonderful. So there's the goal isn't the goal of this website's not to make an income, you're just providing the service? Why okay, why? Now I like you know what I mean? Like what is? Yeah, I'm not saying everybody's doing something for money. I'm not saying that I'm saying that like, when you sit down and say this, obviously you you thought of this as a need so I guess from your professional training, what did you think this was going to alleviate for people like what what? What thing did you see happening that you thought that needs to be righted?

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Korey Hood 22:47
That's a great question. I think, as I've thought about it, I, I think that the critical first part is that I think there were there's not enough awareness about what's available from devices and technologies. And so, you know, if you think about someone who's diagnosed right now, they may, they may have to do a lot of searching a lot of information to get to increase their awareness of what's available to them. So I think that the first part was to increase awareness of devices and technologies that they work and that they're available. The second part was to broaden access, because we know that, you know, if you in your search right there, if you would have put in a different type of insurance, or maybe you put in Medicaid or Medicare, it may come back as not being covered. And so then, you know, many times people in those situations will just stop and they'll say, you know, I don't know what I'm supposed to do, I can't access this. So we wanted to, you know, help people become more aware, help them gain access. And that may be you know, we have different kinds of programs, or not programs, but guides for them to seek approval, how to get, you know, pre certification, do all of those kinds of things that are that are a lot of work. So, and then and then the last part is that, to get people on technology and get them on devices, we think that that'll improve both quality of life and their health outcomes. And that's, you know, that's further down the road, things that we don't track as closely, but, you know, we're, we're interested in that, and I think they, you know, your your question about the the money side is, is a great one. I think that, you know, the reality is you couldn't sustain this without, you know, philanthropy, you can't, and you couldn't sustain this without some income and you can't maintain a, I don't know, an unbiased or unbranded view, if you start taking money from device manufacturers, or companies and so we have to find a way Our long term program, our long term ideas, we've got to make this sustainable in a way that we can still remain neutral. But we were gonna have to generate some income to support it in some way.

Scott Benner 25:09
Well, Cory, you should have came to me earlier, because what I do is I just say, Look, you can buy ads in the podcast, but if somebody says something crappy about your thing, I'm not sticking up for you. I just think it's, it's people's experiences i. So you know, it's funny. I relate to exactly what you're saying, you can have a thing that is so valuable to people. But that doesn't mean anything. You still have to make them aware of it, show them how to use it, make them understand why it's helpful for them. Like it really is. It's a difficult thing. Like I have Episodes Series within this podcast, I am completely comfortable telling you, Cory, you listen to those series, you're able to see is going to be a six with very little trouble. And I don't mean in the six. Yeah, I mean, a six. If you apply a couple of the other ideas, you can live in the fives with a little bit of technology, free podcast, like that's it like I, because I take ads, because I got into the same spot you were at, I was like, I'm gonna have this thing. And it turns out, if you turn to people and say, Hey, I could save your life for $5 a month, they'll go no, thank you, and you don't like it. And you know, and that's just the thing you can't get past. I, I tried to make the podcast for a little while without ads. And then my wife was like, You better get a job. And I was like, Okay, so. So we took some ads. And what I find is that I just stay focused on in my mind, my job is helping people. That's all I see my job as, and I take advertising money for people. So I can do that. And I also find that the honesty, which is why I like this idea. I think the honesty fixes everything, because nothing's perfect. And in fairness, I don't see any device manufacturers running around saying our thing is perfect. And your thing is, and I think it's pretty obvious once it's in your hands, everything has limitations one way or the other, right? It's what's best for you. And I actually think from a marketing perspective, that's the best thing that the companies could say, is that you should try our thing. And hopefully it's right for you. That I mean, to me, that's that's how you sell this stuff like it's a TiVo. You put it in their house, and then they'll love it, or they'll hate it, and they'll keep it or they won't, and you move on to the next person. Is this terrific that you're doing this? Really, it's, I guess, then the next leap? Right? It's probably what you're here is how do you how do you make people aware of it? That's absolutely difficult. Yeah.

Korey Hood 27:39
And I think that, you know, I, I appreciate everything that you mentioned there. And I also think these are the things that I think we're, we're thinking about as we try and grow this and reach I think that one of the biggest efforts we've tried to make in the last probably six months is making more diabetes care professionals aware of the site, because we think there's a lot of value with the prescription tool, we think there's a lot of value with, you know, the comparison of the different features. And I mean, you think about I mean, we're not just thinking about the endocrinologist here, we're thinking about those in primary care, you know, the 60, something that only gets to see primary care, never sees the diabetes specialist, but, you know, how are they going to get become more aware of this. And so, I think that so some of those efforts include reaching out to specific clinics, making them more aware doing things like this. And, you know, it's, it's a great opportunity to be on here and talk about this, and, and, you know, just to continue to get the word out about it, but also, you were trying to exhibit at, we're planning at the American diabetes Association and a couple of weeks to have a booth and to talk about it. You know, they give nonprofits a little bit of a price discount, which is the only way that we can be there and exhibit but but but it's really the, you know, the idea you're right, making people more aware is really the the first part and I think that as we hopefully what we can do is we can we can increase access, because we think that there's a lot of people who, who can't access these or just aren't aware of them. So let's let's do that.

Scott Benner 29:25
And this is the pathway to, to that. I did a I mean, you're an actual researcher, but I did an informal poll, maybe a 50 question survey. I think I got 1100 listeners to the podcast to respond. Okay, which and I had a great I had a great person who has type one who was at Johns Hopkins, she was finishing up her MPH and she wanted to help the podcast and I said, you helped me like facilitate this poll, like make it as close to what you know, real researchers would do. We'd be impressed by. And what I learned is that overwhelmingly, the people that listen to this podcast are helped by this podcast, sometimes three or four to one over their doctor, and like six to one over other materials online or in print. And that is, was a real big lesson for me. You know, I just thought, like, wow, I thought I knew what the podcast did for people, I see the reviews, I have a bustling, like Facebook group, like, so I hear back from people constantly. But I thought, Alright, well, let's make it so that they're not, you know, their face isn't an avatar, maybe if they want to say something, you know, sideways to me like this will be a good place for them to do it. I couldn't, I couldn't get anybody to say anything different. It was it was just, it was fascinating. And so when I think about my job, I think my job and your job are very similar. I've been doing this for nine years. And when people asked me what I want the goal, what is the long term goal of this, I always think I want for one day, somebody goes to their doctor's office, and actually gets the right information immediately. And because you can't count on your doctor, right? Like they're not with you all the time, they can't, they can't be in your pocket, but they can put you in the right direction. And I am really, I'm really sure that by trying to sometimes save people's feelings or not overload them, you can send them down the wrong path, then they can have a bad outcome. And then they can come to believe that that outcome is there, is there a lot in life, and then they don't look up again. And then they just live like that. And they go, they go down? You know, I mean, you have no idea how many people come on here and talk about their 11 a one sees for 10 years of their life. And then I somewhat fixed it. I was in Costco one day, and a lady saw my pump and told me about your podcast. And now my one sees a six. And, and I think about technology the same way. So many people, especially kind of old school type ones, especially their expectations aren't the same. And so when they're presented with these ideas, so like now, this is good enough, I'm fine. But with pumps, like, I mean, I know you don't use like, but I mean, any of the algorithms on the pod five control IQ, this eyelet thing it's about to come out, right? I mean, I think I like shooting for like a seven a one C I'm not sure I'm about to interview him this week, right? But so don't hold me to that right now. But if I slap a pump on someone with an 11, a, one C, and they can keep a seven? Well, you just changed their life. You know, absolutely, you know, and so but then again, it becomes about awareness and access and and that feeling like I could do this. And and that's not something you get from your doctor, your doctor who by the way, could be in practice for 25 years, and be giving you a certain pump, because 20 years ago, 20 years ago, like a pretty girl with broader bagels on Fridays, and was like holding up a pump, you know, like you don't know why you're being told what to do. And I wanted to ask you about that. Because if you're willing to talk about it, when you speak to doctors, do they really no. Where are they just doing what they do, too? Does that make sense?

Korey Hood 33:24
Yeah, no, it does make sense. And I and I, I think that I appreciate the the context to why you know, why we think about this, I think I guess I would leave no answer from both the personal and then more of like the diabetes, wives diabetes, why sigh? I think that, personally, I think what I what I have found myself doing is gravitating toward doctors that that No, and that are in the know. And so I've been fortunate to be in places where there are some really great, you know, endocrinologist or diabetologists, who I can access. And so, and there have been several that, you know, you you push to the side, because there may be not as it's not even about being aggressive, but just being you know, I guess listening to me, and doing what I think might be helpful or are going to, but I think I'm in a really unique and privileged position to be able to do that because of the because of where I've worked and people that I've gotten to know. So I think that what I would love is for people to feel like that. You know that to have that personal connection to a provider where they can tell them things and the provider is going to have their back or they're going to do that and I think that they're out there, but those are also the ones that you'll have a waiting list of a year long because they know that they're really great. So I think that you so that's a little bit about Part of it. And then I think the other thing that it reminded me, when you were you were mentioning that was that on diabetes wise, we have a section called wisdom. And it's really these stories that people have. And some of them are quotes, some of them are videos, you can watch about their experiences. And a lot of times, it's about their experiences with devices. But the amount that people feel empowered, when they, when they take over some part of management, and maybe that's through device and being able to see the numbers make a decision about device, you know, when they feel empowered about it, it really changes I think, their, their approach to management, and that I think that you were talking about, you know, the example of the person that has that interaction in Costco and then goes from an 11 to seven, a one C, I mean, it's because they've been empowered, and, you know, in your podcasts, empower them. What we're hoping is what diabetes wise, we empower them in a way. And the last thing I'll say real quick about that, is that, you know, there's some, there's some really good, some really interesting research on the way that people view, patience, you know, view different kinds of providers, even though they don't always agree with them, or they still give them a lot of power. You give them a lot of I mean, they're, they're in there's so much reverence to the providers. And then, but the reality is that they listened to other people who are in the in the trenches are on the front line, in the same way they they listened to them in a different way. And I think it's often a more powerful way,

Scott Benner 36:46
those two things can conflict a lot, too. I've come to believe, yeah, doctors, teachers, police officers, we just believe, like, hands down, we're just like, okay, no matter what, like I was raised to say, yes, and the white coat doctrine, you went to more school than me, you must be smarter than I am, you know, like all that other stuff. And then you go out into the real world, and someone says, Have you tried Pre-Bolus thing, and they go, Oh, my doctor says not to do that. And then there are some people whose personalities allow them to just break free of that and try. But overwhelmingly, a lot of people are rule followers. And, and so they'll spend this, this breaks my heart, most specifically, they'll spend their time knowing that what they're doing is wrong, believing there's a better way, and not being able to act on it. And I think that psychological punishment is maybe one of the sadder things I've seen in diabetes, like to get up every day, to be scared to eat, to be scared to use your insulin to know there's something you should be doing. Not only do you know that there has to be something else here. But I was just talking to somebody and they're doing it. And then they can't take that step. I mean, I hope you're putting a lot of effort into getting this to doctors, like specifically, obviously, there are plenty of doctors that know what they're doing. We're not talking I mean, if they all did, then we wouldn't be talking about it. But I'm not even coming down on the ones who don't. I mean, honestly, like my daughter just crossed out of pediatric into adult endocrinology. And we were very lucky. You said the same thing. We were lucky that. I mean, we were able to find a head and shoulders above the rest physician, who, by the way, doesn't do type one anymore. But he's doing it for Arden, you know, and you know, my mom's still alive, man, because my neighbor's kid grew up to be a doctor who knew another doctor who set us up with an oncologist. When other people were saying, now your mom's too old will will let nature take its course. And that guy was like, Oh, you want me to help her? I'll help her. And that's a privilege right there just by knowing people. I think that most people are not going to come into that situation. So you really it is your job. You know, to circle back around, like, I don't ever think I finished my thought completely. I see my job as telling enough people in the moment how to help themselves. So that then they go to their doctors. And inevitably, the doctor is gonna say, How did you do this? And this, they will say, I listened to the Juicebox Podcast. And then I had doctors come on i There's an endo. They came on the show a couple of years ago. And she said the podcast fundamentally changed how she helped people. That and so like, I think that's it. Like I think when I like when I lay down and die, you know, I'd like I'd like to think that I changed how doctors talk to people about their diabetes. On some level, like somewhere and this is how these things happen. Very, very small steps.

Korey Hood 39:49
Yeah, no, I absolutely agree with you. And I think that I mean, both on the the idea of the impact but one of the one of the you're pointing things out actually ties into what we thought about what diabetes wise was that the only way that there's an authenticity to it? Or is if you hear from other people with diabetes? You know, it's not, you know, I think that we can listen to a lot of different providers. And there's, there's great providers, like you said, and there, I think the ones who aren't as aware, it's usually because they, they don't have the time to it, you know, and they're, you know, they've got, they're seeing 40 patients in a day, and then it's trying to figure out a time to, like, learn something new. It's really tricky. So I think in on diabetes wise, we, we wanted within the wisdom section to insert that, but we also added to your point about, you know, kind of the guides and giving some people some, some, it's, it is advice. I mean, we're not, we're not reserved about offering advice. But we, you know, we offer guides for how to talk to your provider about getting on a device, you know, here's some things that you can say, that are going to be helpful. Here are some phrases you might want to use, this is the time to do it, you may even want to send a message through the patient portal. Before you go, because I want to talk about getting on a pump. I want to talk about starting on CGM, that, and then excuse me, and then also on the provider side, and we really think about what are, you know, what are some better ways to listen to, you know, what your, what the person with diabetes is coming to you about what are some, and if you want to prescribe, here's some, here's ways to do it. And if you get that first, you know, denial, don't give up, we've got to keep pushing through on these ways,

Scott Benner 41:50
I find it's helpful to give people expectations. So there's another thing I think, that I'm doing here is I somehow by the way, before Ted Lassa was popular, I saw part of my job is just like, I'm like the coach, like as you're running out on the field, it's a slap on the ass and like you can do it get out there. You know, like, there's part of that. There's also part about I bucked the system years ago, and you've been around a long time, Cory, so you're gonna know what I'm talking about. But there was a, there was a an edict in the diabetes community, people who created content that you didn't celebrate, because it made people feel better. And I don't like I don't think you should be running around in the endzone, like spiking the ball and, you know, flipping people off in the stance. But, but, but I do think is there, there's, there's a mistake that if you think of people as being above you, they're not above you, they're ahead of you. Like, like, it's not a it's not a score, it's a path. And so why would we not illuminate the people up ahead who have already traversed all the problems? Know the answers are having the success that you're hoping for? Why don't we shine a light on them as hope, like, so to me, you give people expectation that they deserve better, and hope that they can achieve more. And then you show them, look, here's how, here's how I did it. That's all I'm doing here, I just share what worked for my daughter. And you can cherry pick from it or copied it exactly, or ignore me, I like I don't care, I'm just doing my best to put it out there. And I do think that was the other thing that this space missed for a while was that a lot of the content was coming from people who were struggling, which then makes it feel like that's the whole world. And then the people who like figured it out, they kind of go away and go back to their life. And I said to my wife one time, I'm like, I'm gonna stay behind and, and like, try to be a beacon. You know, and that takes a little bit of, I don't know what that takes. I was gonna say chutzpah, but I don't know if people know that work that but but what I did was I looked at my daughter and I said, I have a system. I don't call it something. I haven't marketed it to anything. I didn't name it all. But I know if you do these things, you're a one season the fives. It just is I know it. I'm gonna stay behind and tell stories about it, where I'm at a maybe I'm just going to translate right into this thing. I'm worried for you, you've got this wonderful website. But the one thing I've learned, being around us for so long, again, going back to the beginning, is having good information doesn't make you definitely successful and help you reach people. The reason the podcast works is because there's great information mixed in with stories about like people being diagnosed on a heroin vendor. And so like, you know, like, that's the actual story on the podcast, like, you know, where people coming on and being like, so emotional and honest about themselves. And like, really, it's the long form that allows it to happen. And then I mean, not for nothing. I just got here first. So my my camera's been set up longer. And so that's where that's where the numbers. I mean, I don't know what you think about all day, but most of the day, I think about helping more people, like how do you reach more people? And I mean, I'm happy to have you on here and help about this, because this is just a wonderful idea. And I know how hard it is to put it in front of people.

Korey Hood 45:15
Yeah, and I think I think that there, there are a couple things that I thought about as you were mentioning that, one is that, you know, simply giving people education and information. I mean, we've done that, and we know not forever, but we still do it, which is, you know, it doesn't change outcomes, often, you know, what, you know, what, and what we tried to do with diabetes wise, and I'm thinking about a specific story of a guy on, on there named Dan who, who talked a lot about his journey in diabetes, trying some different devices, and then going off them. And then, you know, how, how it made him feel different times, how it made him frustrated, angry. And then to come back, you know, have to give it a couple of years and then come back to it. But then ultimately, what it what it unlocked for him was the ability to do some of the things that he really loves doing. And his specific example was motorcycles. And like being able to do things as a group with other friends that he wasn't able to do before. He had CGM, because he was so worried about going low and things like that. And so I think that the part that helps a lot, and I think that you do this in the podcast, and then what we try and do our diabetes wise as well is to walk people through the process to of when they run up against those barriers, or those challenges. What what do you try and do and then give examples of people who have problems solved to figure it out? And those are the ones that, like you said, are kind of out in the front leading. And, and I can do that a little bit. But if you hear that, from, you know, if you if you listen to stories and you know, ton of other people who did it in the same way, were you were you on the pro side, if you talk to you listen to some of the providers who have struggled over time giving prescriptions, but have found a way to do it. You know, it's I think that's a much more powerful story than anything you're gonna get in a relatively short visit with your provider. Yep.

Scott Benner 47:24
And bullet points are, are, they're useless? Like you, I've said before, like, there can be the secret to life and this episode, if it's not entertaining, you're not gonna get to it. If the sound is bad, Cory, people will shut it off. Like there are so many like, like, little speed bumps that derail people, and I understand why, you know, but it's just it's so dry. And you mentioned it earlier, it's already your whole life. Right? Like, you're living with it constantly, like, well, I'm going to spend my entertainment hours listening about diabetes like, yeah, to your mind. You don't I mean, but that's why when I first started doing this, I had someone come up to me and say, You can't do what you're doing. They said, You're Not You can't tell people how you manage your daughter. It's dangerous. And I said, I disagree. And I think back on that person all the time. And I wonder what would have happened, if I would have just like, let them scare me off, you know, and I said, No, I said, I don't agree with you. I said, I, I reject, honestly, the idea that all of our everyone's diabetes is that different. Your your variables are different, and your personal life is different, etc. But insulin works, the way it works. Hydration works, the way it works. Those things are consistent. And it's sorted to me like, I'm so old now. But it's the matrix. Right? Like, like, I know, when you stop and look at it, in the beginning, it looks like a guy in a black coat. But it turns out, it's ones and zeros. And you know, you can manipulate it. Is it hard? Not after you understand it, you know, it's never gonna be easy, you get better at it, you know, like, it's, there's a path through that. And you have someone's got to give you, I'm gonna ruin my own metaphor, because I forget which pill showed you the matrix. But But someone's got to give you that pill and say, Look, there's more here than what you're seeing. You know, I hate when people say, that's just diabetes. Because to me, that means you just don't understand how insulin works. Like, like, you wouldn't, you wouldn't say that, like diabetes isn't a thing that happens to you. It's a thing that happens that you more frequently don't understand. And understanding it gets you a lot farther and understanding that technology is going to take people a lot farther. I mean, this is this is really wonderful. I appreciate you doing this.

Korey Hood 49:49
And one thing I would add, add to that. I completely agree with that. That idea and I think that what also happens I think with devices and technologies which makes Diabetes, why is unique is that, you know, given our, my experiences personal and diabetes, but also as a psychologist and then a lot of people on our team, how many diabetes? I think that we better understand the the psychological connection to devices and technologies because here's the big one. And, you know, at the core of it, is this relatively straightforward. You know, like you said in The Matrix ones and zeros, I mean, there's a relatively straightforward approach to it. But then you add in all of these emotions, do you add in all of this extra junk that you bring into it or that others bring to it, and it makes it really complicated. And so I think that trying to get through a bit of that with some of the tools that we have on on the sites, I think can help people get through a little bit of that chunk in that baggage. Because if you can make it a bit clearer if you can manage it in a lot better way

Scott Benner 51:02
1,000,000%. It's, it's, listen, Cory, you'll, you were older when you were diagnosed, but I sent my daughter off as a freshman this year, she went 700 miles by car from my house, oh, live by herself. And she kept her agency in the low 60s, mid 60s by herself eating crappy food, it's great first time away. And her agency went up like a half a point from when she left. And I was like, I didn't, I was like, You're doing terrific. You know, like, it just it's and what does she have? She's got a CGM, she has a pump, she's isn't an algorithm. Those things are great. I see plenty of people use those that don't have a one sees like that, like, if you like people know, the food at colleges is horrendous. And a lot of calories and fried food. And you know, bolusing for it is, is a Herculean effort. But But what she really has is, like the things, the ideas that we talked about over the years and went over and, and that when something comes up, she doesn't pause and go, I don't know what to do. She goes, Oh, this is this thing. I do this. You know what I mean? Like, she's got knowledge. And it's, and it's available to her without having to wonder. And I just think that that's incredibly important. And I think that you could the doctors need that. Like when I walk into an office and I say, Hey, do you have a suggestion for an insulin pump? I don't want to hear about the one that you know, you like because the company's up the street from here, which happens in the Midwest a lot, you know, and, like, I don't want to hear which CGM like the commercial you saw. Like I saw the commercials too, like what do you know about them? And if you don't know, learn, and learn by talking to people, not by reading a pamphlet or looking for bullet points. Go find people who are listened to them and you have your patients right there, listen to them, and then figure it out yourself? It's not Do you think the model is I don't know, if I'm going to take you in an uncomfortable way. I often think that the model of one patient going to one doctor for a prescribed amount of time around diabetes is completely wrong. I think that every day 300 People ought to come into an auditorium and all the endocrinologist and the practices stand up front. And they should just talk to everybody, enough people ask questions that everyone's questions will get answered. And I see I see that being I know, there's HIPPA and stuff like that, but you could sign well, but I think that I

Korey Hood 53:34
think that I think you bring up right there at the end, you'll one of the biggest barriers to that is, you know, all of the kinds of regulatory things that make it hard. And there is a conflict between helping people and all of the the kind of roadblocks that we put up from a regulatory standpoint. And I think that, and I think that's partially partially why you've seen people move to some of the things like diabetes wise, and I mean, your podcasts, other sources, where you can you can get more of a Frank, you know, view a more authentic view. And, and I think that there's a lot of value in that. I do think that, I mean, I would love to be able to do more group visits and have people together and, you know, it's it's something that they've been trying to do for two decades. And it's been really tricky to get enough people to want to do these group visits because of some of those kinds of things with privacy and confidentiality and all of that. But the other thing that I think, and this is where I actually thought that you were going with it was thinking about, you know, providing care more remotely and more broadly. And people not having to come into clinics, people not having to come in two places. I think we're moving in In the direction where you're gonna have maybe a little bit more of a, an option to do things remotely and to have a little bit more of a menu of who you might want to see. And if that's the case, then we we need to help people become more informed about making those decisions and choices. And I think that, you know, we try and do that a diabetes wise and, you know, I think that we want people to feel empowered, feel like they can make these choices and decisions on their own, but they need the information, they need the knowledge, they need other people's stories to support, you know, they're pushing us to do this, you're making

Scott Benner 55:37
me think I should get back to something I was doing. I did during COVID A lot. We did these, like zooms. And if I'm, if I'm being honest, I came out of I was trying to prove something at first, I saw a very big diabetes organization, do an online zoom and 14 people are in it. I thought, Oh, is it hard to get people in these things? So then I did want to have to get like 250 people in it. And I was like, Ah, all right, that made me feel better. But then, but then I got in there. And I was like, What is this supposed to be? What's it going to do? What we turned it into was, I will sit here as long as I can and answer as many questions as you can, while everybody listens. But what I have that no one else has is that I get to say at the beginning, but nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise. And then And then, and I'm not telling you what to do. I'm giving you my opinion of your question. And I don't know, when I don't know how long it's gonna have to be before people in a position of power look up and see that they're being served. They're being supplanted by a guy in an extra room in his house, you know what I mean? Like, I'm reaching more people, and, and that, that's where it has to change, really, like, you have to give up that idea of the model, which is like, I'm smarter, I went to school, I know, even though any doctor you talk to will tell you that they like studied diabetes for 18 seconds while they were in med school, right? And you know, like so. But then they get out there with that idea of like, this is this is how it works. It doesn't work like that anymore. My podcast last week was in the top 10 on the US medicine list, with with shows that are run by Fortune 500 companies that have staffs of hundreds of people. And if that doesn't tell you that these people need accessible information that they can walk away and use acceptably, and they don't want to come to your office, and they don't trust you. And we're you're not doing it the way that you should be. If that's not clear at this point, then like, I don't know how, how much clearer to make it. You know, it gets Do you know that we don't just help people here with diabetes, we've taught people how to advocate for themselves with their iron issues, their thyroid issues, their mental health, we branched out, you know, in a world where people told me Don't mix diabetes together, not we help people with type two diabetes, like, you know, like it just, it's not a, all those old models are supposition that doesn't work in the real world anymore. Like this, this is this is how people get information now, like get on border or get left behind, and don't right away. And I'm not and I'm not calling anybody out, although I am thinking of somebody, don't get it in your head to start a podcast, and then make it the same boring stuff that they hear in the office like that, like, yes, the delivery systems, not the problem. The message is the problem. So anyway, yeah, I don't know how

Korey Hood 58:37
I think. No, no, I really appreciate all those comments. And I would also say I think it also ties a little bit back into what you said early on was, you know, thinking about what the value proposition is for people. And in thinking specifically about diabetes wise, I think that, you know, they have to feel like there's some value in it, that they're hearing some advice, or some suggestions or, but but it's also relevant to their life and their daily, the daily grind of diabetes. And I think the, you know, you can speak to that, and the the experience that people have to have, whether we're talking about people with diabetes, or the health care professionals, they have to view it as something that's valuable. It's something that's going to move it along. And I think that, you know, even we make the site free, and we make them accessible to everything. But that's not that's not value value is the feeling like I learned something new. I'm going to apply it to my life. This is how the other person did it. These are technologies that can move me along in my journey with diabetes. And I think that that's what we're trying Well, that's what we're trying to do and hopefully we're we're achieving, and we can keep moving on and along with diabetes wise.

Scott Benner 59:56
Well, bravo. Thank you. I appreciate you doing it. I have other questions that don't have anything to do with this. But I don't want to muddle the the conversation up. So maybe I'll just ask you, if we haven't talked about anything that we should have before I let you go.

Korey Hood 1:00:13
No, I, you know, I really appreciate this time. And I also think, you know, a couple reflecting back on our conversation, I think that I want to just emphasize that diabetes wise is free, that we're, we have a bias toward getting people on devices, but we don't care which ones they are, it's kind of like you said, it's got to fit your life, it's got to be the best one for you. And I think that we have some, some features and some tools on it that help you figure out what that is, what is going to be the best fit for your life. And so then I shouldn't, you know, also note, you know, we've great relationship with the homes we trust, and we really support them from both the funding but also just the, they're, they're allowing us to do the things that we want to do with this and make it accessible to people. So

Scott Benner 1:01:04
David's been on the show. Yeah,

Korey Hood 1:01:07
I listened, I listened to it back and listen to is, and I realized you're you're approaching, you're probably approaching 1000 episodes soon, right? Like, sometime this year, or next year, you'll put

Scott Benner 1:01:17
out delightful and a couple of months, I O in a couple of months. Okay. So Cory, the same thing is, when when I was imagining all this, usually I used to keep this stuff private, but I guess nobody's gonna, like try to do it. So I guess I can just say what I'm doing. Most podcasts come out once a week, some come out once a month, there are people I know a person who tells me that their podcast is in its ninth season. But it has, you know, 80 episodes, I put, I put out 80 episodes in two months. Because for me, it's content. And it's keeping you here, right like because I don't know how to put this. But it's social media, if people don't understand social media is like trying to keep a rock hot with a match. As long as you hold the match on it, the rock is hot, the minute you take the match away, the rock is cool. And before you know it, someone else will come along and heat up a different rock. And that's it like so it has to be informative. It has to be accessible, you have to meet people where they are, it has to be entertaining, it has to be valuable. And it has to be plentiful. Like you I can't just put out an episode once a week and hope everyone remembers to come back. You don't mean like because in the last seven days, Netflix put out three different shows. You know, Joe Rogan had somebody on that everybody wanted to hear about and they're all yelling and screaming, there's too much going on. So I don't think of this as a podcast, as much of it as they think of it as a community. And it's a community of people who you don't meet. But I have to think of one of the one of the people who was on the show a couple of years ago. So young girl and like her mid to late 20s. And, you know, she told me she was coming on and telling me how much the podcast helped her. And we had a long conversation. I think like 45 minutes into it. I said, like, how did the podcast help you? I was like literally sitting back getting ready for my kudos about how I taught her how to Bolus or something like that. She goes, No, I knew all that before. And I said, Oh, I don't understand how the podcast helped you. Then she goes, I don't either. But when I listen, I want to do better. And that was it. When she said that I thought, well, then I can't just put up one episode this week, because what if that's not for her, I'm going to put up four. She'll want one of them. You know what I mean? Like one of them will meet her need this week. And that's how I think of it now. Like I just I want you to have a ton of options just like with these devices. And maybe you're not going to want three of them. But you'll want one that'll keep you here listening to other people's stories. And you know, 35 minutes into a story you might hear like, Oh, is that how you Bolus for pizza? I didn't know that. You know, what's a fat rise? Like how fascinating it is at Cory? How many people are using insulin to control their diabetes, and not one doctor has ever told you that fat slows down your digestion? And that's why you spike later. No one ever says that. You know what they say? You should see a nutritionist. Great. Yeah, yeah, that'll help me. Thanks a lot. So give me something I can work with here. Anyway, you get me all upset now. Cory I can I get

Korey Hood 1:04:18
right as we're wrapping up, I

Scott Benner 1:04:19
go on and on. I'm like, I just I just it. It just all seems like common sense. And and I have to say something. It's an aesthetic decision on your website. I don't know who made the decision. But using sort of just line drawings of devices in Azure graphics instead of images. It's it's nice because it really doesn't feel like a marketing tool. And it's clearly not but I mean, it could get shiny if you started using the images. It's a nice, it's a nice, small decision. Aesthetically. It's wonderful. Well,

Korey Hood 1:04:51
I appreciate you saying I don't know just call out the cell recruitment and the team that helped me which was a design company in San Francis so that we worked with closely on this, and Sarah has type one diabetes, and we found surrounding ourselves with a lot of people with diabetes has helped a lot of really smart people, you know, has helped us figure out some of these things. So that was her decision.

Scott Benner 1:05:16
That's wonderful. You tell Sarah if she ever wants to make some free graphics for a podcast, I know somebody will take her up on it. Great, thanks very much.

I want to thank Corey for coming on the show and remind you that you can check out diabetes wise at diabetes ys.org. And let's thank Omni pod and the contour next gen blood glucose meter for sponsoring this episode of the podcast, Omni pod.com Ford slash juice box get that free test drive or learn more about Omni pod five and Omni pod Dash. And of course contour next one.com forward slash juicebox. read up about our meter. Get one for yourself. Buy it right there online. The whole shebang. It's a great website. They're both great websites, they explain everything, using my links help support the show. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. If you're looking for community around your diabetes, check out Juicebox Podcast type one diabetes on Facebook. And that group is for everybody. I know what the title says But uh, your type one, your type two. You're welcome. I don't care how you eat. I don't care anything about what you do. Your business is your business. Come on in. Check out the group. Watch some of the conversations jump in and get involved or just sit back and try to learn from others. Juicebox Podcast type one diabetes. There's something in there for everyone.

#941 Dog Tales

Maddie has type 1 diabetes and trained her own diabetes service dog.

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
Hello friends, and welcome to episode 941 of the Juicebox Podcast.

Today on the podcast we'll be speaking with Maddie, she's 18 years old has type one diabetes, couple other things going on, and she trained her own diabetes alert dog. Get the hell out of here, right? It's great, great way to hear how she did it. I mean after we hear her story, so we'll talk to her a little bit, we'll talk about the dogs then some other stuff. There's some joking around. You know how these go. While you're listening. Please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your healthcare plan, or becoming bold with insulin. If you're looking to save 10% off therapy, go to better help.com forward slash juicebox because at that link, you will save 10% off your first month of therapy with better help to get five free travel packs and a year supply of vitamin D with your first order. Athletic greens.com forward slash juicebox get some ad one with Scotties link. And to save 35% 35% off your entire order at cozy earth.com. Just use the offer code juice box at checkout. All right, you're ready. Couple of ads, and we're on our way. Don't skip the ads. Skip the ads. There's no podcast. This episode of The Juicebox Podcast is sponsored by us med. US med is the place where we get Arden's supplies from we get diabetes supplies, like Dexcom and Omnipod. There, but there's more. You can get tandem freestyle, and a lot more. Head over now to us med.com forward slash juice box to get your free benefits check. Or you can call my special number 888721151 for us med always provides 90 days worth of supplies and fast and free shipping, get better service and better care at us. bed.com forward slash Juicebox Podcast

Maddie 2:19
been type one diabetic for 11 years. And I'm just going to talk a little bit about self training Diabetic Alert dogs.

Scott Benner 2:28
Okay. Maddie, you being so young ruins all of my fun about your last name. You know that right? Yes, yeah. We're not going to say your last name. But let's like what's the what? Well, listen, well, we'll we'll talk about it for a second. First of all, let's let's say this first. When I was younger before I had met ladies and thought that I might actually be able to trick one of them into marrying me one day. I wanted to name a baby Madison one day. But that was the name. That was the name I had picked. It did not work for my my wife did not agree with me apparently but. But that was the name that was in my head for years when I was younger. Okay, so we're not going to say your last name Maddie. Okay, but it basically means let me think. Mostly, is that what it basically means? Probably Probably. Okay. Do you have brothers? No. Are you with your does your father live at home? Yes. Do the ladies seem to really love him? Maybe maybe, okay. Your mom and dad married? Yeah. Okay. Does your mom seem really happy?

Maddie 3:43
Well, they had their moments. My dad has a traumatic brain injury. So it's a lot.

Scott Benner 3:48
Oh my god did hit him in the head. What happened?

Maddie 3:53
He told me he was in a car accident.

Scott Benner 3:57
Oh, Maddie. I'm so sorry. This isn't fun at all. No, no. Well, at least he has that name, which I would wander. I have to tell you. My last name was your last name. When I introduced myself. I'd say my last name every time. I go when I walked into a room of people like my last name is Benner. I'd never say it because bad name. You don't I mean, actually, both of my names suck. Have you really thought about Scott terrible name? Right? It's very curt and terrible, short, meaningless. And then Benner which gets run over like, what do they say? Bent bent? What do you say Brenner? Like, that's how it goes all the time. But if I had your name, I'd walk in there might be like, Hi, I'm Scott Benner. Damnit, everybody hear it? It's a great name. I hope you have many sons. They will have amazing lives with that name. Don't take your husband's name if you get married, okay. Okay. You make him take that name. If you're getting if you're thinking that way, but that's not my business. Alright, so you are 18 you were diagnosed 11 years ago. So you were seven when you were diagnosed? Is that right?

Maddie 4:58
Oh, it's been 12 years. Well,

Scott Benner 5:00
you're an only child. Is that correct? Oh, I

Maddie 5:03
have an older sister, older sister.

Scott Benner 5:05
I just know brothers. Excuse me. How old is your sister?

Maddie 5:09
She's 25.

Scott Benner 5:11
Does she have any autoimmune stuff?

Maddie 5:13
Um, no, she, she's legally blind. But that's not an autoimmune condition.

Scott Benner 5:19
Maddie are there anybody else in your family that if I bring up you're gonna tell you something sad about them?

Maddie 5:28
Probably, really? Well, I feel everyone like my immediate family has something like something medical.

Scott Benner 5:36
No kidding. Alright, well, let's go. Oh, hold on, then. Let's pick through it for a second. You. You're Maddie. Yes. You have type one. Do you have anything else?

Maddie 5:46
I have a couple other things. Well, I have non epileptic seizures. So that's fun. I don't but nothing related. Like nothing that came off of type one.

Scott Benner 6:01
Okay, no. Non epileptic seizures.

Maddie 6:05
Yeah, that's caused by like, an over like my body over exaggerate stress anxiety. So I just go into the theater if I'm overly stressed. Okay.

Scott Benner 6:12
You shouldn't have started with the talk. You think? Probably not. Yeah. Sorry. Should we debrief together or something?

Maddie 6:23
No, it's fine. Okay,

Scott Benner 6:24
so how long have you had those?

Maddie 6:27
Since October? 2019.

Scott Benner 6:32
Oh, okay. So it's a I mean, it's three years, but it's a newer thing.

Maddie 6:35
Yeah. How? So? Trying to figure it out?

Scott Benner 6:38
Yeah. How often do they happen? Do you see? Like, can you see triggers coming? Or does it surprise you?

Maddie 6:44
Well, my only trigger that I've found a school. So my only trigger is like school. So I tried college that didn't work in high school. They were daily multiple times a day lasting upwards of an hour. Sometimes longer than that. And I just kind of learned to deal with it. That's my life. They don't happen anywhere other than school. So I just don't go to school. Problem solved. I'm

Scott Benner 7:14
mad, aren't you? I see what's happening. You I'm making air quotes that you have non epileptic seizures because, you know, you found a way to get out of school.

Maddie 7:24
Well, I, I graduated, I walked that stage. And I just I had to have a one on one to basically be there in case Oh, not in case. But when I had a seizure, they would just be there. So the class that had to be stopped.

Scott Benner 7:39
I made how often do you think that happened in total in the last three years?

Maddie 7:45
1000s upon 1000s of times. I mean, at one point, I was conscious, two to four hours a day and unconscious 20 to 22 hours a day. Whether that was sleeping or seizing, that was my life.

Scott Benner 7:59
Oh my gosh, um, have you? How have you attack this from a medical doctor? I imagine but have you seen like a therapist as well?

Maddie 8:08
Yeah, so the only treatment for it is counseling. Okay. So I've I've seen conflict since I was diagnosed with type one. So it's, you know, I've, I've had treatment for mental health related stuff since I was six. But that is really the only treatment there's some medication, but it's hit or miss. I also have vasovagal syncope. So most meds will lower my heart rate too much and that I pass out from that. So it's like I can't win with meds. So it's just for me, it's just counseling.

Scott Benner 8:52
Okay, I'm looking stuff up now. Is this called PNAS? Yes, pn es are attacks that may look like epileptic seizures, but are not epileptic and instead are caused by psychological factors. Sometimes a specific traumatic event can be identified. Do you have a trauma that you can look back and see?

Maddie 9:12
Not really, that's what makes like my exact case unique is most people have PTSD, that triggers is like that stems these attacks. But I don't. I mean, yeah, I've had some somewhat traumatic experience being diagnosed with type one. My father is correct. Those type of things. Nothing really that would relate to school being social school that I would cease.

Scott Benner 9:38
Okay. All right. Maddie, I have to tell you like 99 out of 100 times I love that. I don't know anything about people. But there's not a lot I wouldn't give right now to go back into a time machine and not start talking about your last name at the beginning. I feel so feel stupid. We're gonna get past that. I'm going to try to get past it you've seen like your past at all. But yeah, your sister who's older, legally blind, you said,

Maddie 10:04
yep. And she has autism

Scott Benner 10:06
from birth.

Maddie 10:09
Legally blind from birth and obviously awesome from birth. Yeah,

Scott Benner 10:12
I didn't mean, I appreciate. I appreciate you being like, this idiot might not understand autism, but no, I did. I didn't mean legally blind from birth. Okay, so she legally How old is she?

Maddie 10:23
She's 25. And she was diagnosed with whatever her eye condition is at three months.

Scott Benner 10:31
Gosh, your parents are together.

Maddie 10:35
Yeah, so her dad's her dad, and my mom separated. Five years later, five, six years later, then they got married and then had me a year later.

Scott Benner 10:45
Okay, so your father and her father? Two different men? Yes. Got it. Yeah, it was like, I know a lot of guys. I was like, Wait, your father stuck around? Like most guys are just hard, you know? Yeah. I mean. Yeah. So. Okay. Other people in your family? Your father has traumatic brain injury. But that's from an auto accident car accident. How about your sister's father? Does he have anything going on that you know about?

Maddie 11:15
Not I never met him. So I have no idea.

Scott Benner 11:19
Okay. Your mom.

Maddie 11:21
She has a brain tumor. Seriously, it's fun. Yeah, they found it because he had meningitis several years ago. And then that's when they found that, but it hasn't grown. So they don't think it's going to do anything. But it's definitely something that, you know, you have to watch for the target like brain scans every year to or something like that, to monitor to see if a tumor has grown or anything, which hasn't been the last. It's changed shape, but it hasn't grown at all.

Scott Benner 11:54
Okay. And does she have any ill effects from it? Or is it just there?

Maddie 11:58
No, it's just there. And her doctor said a lot of people actually, when they die, they find them. They find out that they have this tumor. But it never affected that at all in her life. But since she had meningitis, I was getting MRIs and stuff. That's what I found.

Scott Benner 12:14
I must have a stupid bone somewhere. I bet you will find that when they do an autopsy. You know what I mean? Yeah, you know, you listen to this podcast by

Maddie 12:24
not as much as I wish I did. But I do listen, like probably once or twice a month.

Scott Benner 12:31
What are you busy? You got like workers? Yeah,

Maddie 12:33
I, I work. I'm a dog groomer. And I work all the time and it's exhausting. Have you considered what when I get home, I just go just go to sleep for like three hours, wake up, eat dinner and go back to sleep and understand.

Scott Benner 12:47
Have you considered quitting your job? So you can listen to the podcast more? No, think about it. Let me know what you come up with. Yeah, I mean, not everything.

Maddie 12:57
Love the podcast? Or listen to the full episodes.

Scott Benner 13:01
That's what I'm saying. But everything's not about you. You know. So think of me once in a while. I build seriously your downloads can be the difference between me having a good day and a better day. Sorry. The handling just in your, in your immediate family, the four of you. Wow, I imagine it's been long enough now that these things are all commonplace in your life. But as they get sprinkled in one after the other, is there not the feeling of like Jesus, what's next?

Maddie 13:36
I mean, not really. Because I'm just so used to like, one after another at this point that I'm like, Well, this is my life. This is how I'm gonna live. And I'm not gonna like make like, I'm gonna make sure like, I control my life and that my illness is

Speaker 1 13:53
good for you. I'm always really uplifted when I speak to people like you. I did an episode a couple of weeks ago, it's not out yet. Doesn't matter. You will not you won't listen to it. But with a quadriplegic, who Yeah, you know, became acquired by a medical mistake, which is already just terrible. And then, and then a handful of years later gets type one diabetes.

Scott Benner 14:22
Just really, and she's got such a great attitude. And I just I look, I'm sick. Maddie, I've got like, I think I got what they call the RSV, respiratory. Something right? I am walking around this house complaining. Like someone drove a metal spike through my thigh. Get on me and I'm like, When is this gonna stop? This isn't fair. I started philosophizing with my wife the other day she's sick by the way. My poor wife has this and COVID at the same time. I think she's doubly ill. She has been ill for weeks. And I'm standing there trying to have an existential conversation about why did illnesses even exist and she's like, shut up. So, I'm assuming if any of the things that happened to the people in your life happened to me, she'd probably she probably kicked me out. Don't you think? I would never stop complaining. I just, first of all, Maddie, I love to complain like a sport. I don't I don't even complain to complain. I just love the practice of it. Some people know what I'm talking about. You're not one of them. Okay, how is it managing your type one diabetes, and I'm fascinated managing type one doesn't pressure you.

Maddie 15:32
I mean,

Scott Benner 15:34
not enough to make you have a seizure.

Maddie 15:36
Yeah, but like, my seizures are definitely like, there's a certain type of stress at tourism. It's not like, oh, I my budget is so high. I don't know why and like, there's a shuffle. It's not like that. It's like, the most random stupid thing that you wouldn't think would trigger someone to have any anxiety or like that severe of anxiety. Like, the squander will just too many stimuli around me and everything like that, like that's what triggered me. So like, Mandarin type one doesn't. I mean, I lived with it more than half my life. I mean, 12 years. So I'm just so used to it by now that I know, like, just not really what to expect. Because obviously, you'd never really know what to expect day by day, but I just deal with it how I have to, and Sundays that's sitting in my room crying because I don't want to be type on anymore. And other days that's doing like public speeches on different like, I did a public speech at a library, no one showed up. But that's not the point. I went there, and I had everything ready. And I did a presentation to the person that organized it. And it was about service dogs and disability awareness. And so that's like, doing those sort of things is my outlet. And that's like helping helping other people's base my outlet. Yeah. So yeah.

Scott Benner 17:12
Are you trying to be my favorite person because I am on a lot of cold medicine right now. But you You made me cry. That was really lovely. I commend you for showing up at that event. And, and giving your presentation to one person. That's really, it's really wonderful. Oh my god, you're gonna make me cry. Oh, hold on. I need that time machine. We got to stop the to go back and cut that stuff out. Cheese. Do you think the whole person's making me weepy? What's going on? What's that Advil cold and sinus? You know, you can't buy that much of it because they think you're making meth with it. Yeah, you gotta give me your driver's license. Yeah, it'd be Id just hurry. Yeah, but but if you buy one tablet and one liquid gel, they don't bother you. But you can't buy two tablets. Interesting, huh? Yeah. Do people do you think people are like, wait, you can make mathematical medicine? Or people hearing this for the first time? Some of them I imagine. Right? Probably a few people anyway, that's why you have to give your your ID when you buy certain medications at a pharmacy because they want to make sure you're not breaking bad somewhere. Is that an old reference or to Breaking Bad holed up in Netflix?

Maddie 18:24
I never watched it. So

Scott Benner 18:26
apparently, it's a terrible reference. Okay. If I asked you questions about school, and what makes the seizures you can answer the questions right now. They wouldn't bother you.

Maddie 18:43
Yeah, I mean, I don't really have answers for you though. Because we don't even know what exactly triggered them at school. Yeah, no, I'm not gonna go schools.

Scott Benner 18:53
I'm sorry. Maybe I'm not gonna ask you the questions. I just wanted to know like, if I started grilling you like hey, so when did when does it happen when you get there when you saw certain teacher when you're in it, like you'd be able to talk about it right now. You wouldn't have any trouble? Yeah, that's fascinating. Okay. You said that when you were younger, you had some other psychological illness that you were dealing with what was that

US med takes over 800 private insurances and Medicare nationwide. They have an A plus rating with the Better Business Bureau and they're the place that Arden gets her supplies from art and gets her on the pod dash and her Dexcom G seven from us med but they also carry on the pod five tandem T slim x two FreeStyle Libre two and libre three and the Dexcom G six. Holy Hannah. They also have syringes and insulin and testing supplies at US med they're the number one distributor for FreeStyle Libre systems nationwide, the number one specialty distributor for us The PA dash, the number one fastest growing tandem distributor. And the number one rated distributor index. com customer satisfaction surveys. Holy moly, better service and better care at us med.com forward slash juicebox. US med has get this listen to what I'm gonna say. US Matt has helped over 1 million people with diabetes since 1996. And they'd love to help you to call 888-721-1514 or go to the link us med.com forward slash juicebox. Use the phone number or the link to get your free benefits check. And then you'll be on your way to getting your supplies just like art from us med. Are you looking for somewhere online to talk with other people who have type one diabetes, maybe some type twos, maybe some people have gestational, or I don't know they're the parents of kids with diabetes. I've got the spot for you. Juicebox Podcast, type one diabetes on Facebook, it's a private group with 40,000 members to a wonderful place. And I think you'll enjoy it. Check it out. It's completely free. As is everything with the Podcast, the podcast shouldn't cost your money. The Facebook group shouldn't cost you money. We don't give you a little bit of information in an episode and then send you to another place to pay for more later. We don't do that crap. This Facebook group is terrific. Juicebox Podcast type one diabetes on Facebook. It's a private group. So you answer a couple of questions that prove you're a person. And the next thing you know, you're having conversations or reading conversations about the things that matter to you most. There are links to us med the private Facebook group and all the sponsors in the show notes of the podcast player you're listening in right now. Or you can find those same links at juicebox podcast.com. Let's get back to Maddie and find out how she trained that dog by herself.

Maddie 21:57
I don't know

Scott Benner 21:59
is that oh, then I miss her. Again the golden sinus. I thought you said that earlier. When you were younger. You had something else you were dealing with? I'm sorry.

Maddie 22:08
Just being diagnosed with type one and then my dad's Correct.

Scott Benner 22:12
Okay, those things? Well, those are those are big things. Was your father in the hospital a long time after his accident?

Maddie 22:18
He was in a coma for five weeks and rehab for six weeks.

Scott Benner 22:22
Did you? How old were you when that happened?

Maddie 22:24
I was four. Okay,

Scott Benner 22:26
we're still pretty young. Were they preparing?

Maddie 22:29
For a ton of it. But um, they the hospital basically told my mom one day that you might want to go home with her children that they don't have a dad anymore because your your husband's brain dead. And then she's like, well, that's happening because he's not brain dead. And Tara, the doctors surprised he wasn't actually brain dead. And they don't know why. First, like whatever they do is check that they don't know why that came back as he was brain dead. But he's back to work full time doing what he used to do. before his accident, he just no longer has his own company, huge company. He works for someone else now. But he's still doing what he loved to do.

Scott Benner 23:10
So that's amazing. So I mean, it's like he went from Hey, this guy's never waken up to like functioning in his life again.

Maddie 23:19
Yeah. And they everything that they said that he did the opposite. So like, they will they basically said, you know, he's never gonna learn, like, he's never gonna know how to be a master electrician. Again, he's gonna have to learn, you know, basic, like basic, basic stuff. And yes, he didn't have to learn how to like brush his teeth, comb his hair, walk, get dressed, like do those basic things. But then he had like Job, coach, people come to the house and basically show him how to go on interviews and get hired and then go on jobs. And he was like, this is easy, I can do this. And he's back working as a full time master electrician.

Scott Benner 24:00
That's good money, by the way for anybody listening. If you're growing up and don't know what to do, right, Maddie, like, electricians get paid? Well. Yeah, you're like it's not helping me. I'm still working. Okay. Do you date

Maddie 24:18
lottery now?

Scott Benner 24:19
You have in the past or you're open to dating. I'm trying to find out what's going on with you stops you from wanting to interact with people like that. What do you mean? Well, I don't know. Like, I don't know I'm trying to learn about you. So I'm trying to find out if you're, if your self confidence is good, if you're like if the things that are up with you diabetes, this disorder, etc. If these are things that hold you back and keep you private, or if you're still out

Maddie 24:44
nothing, nothing really holds him back. I like showing off my pump I've always had like showing off my diabetes I'm I'd like to say I'm a pretty confident person. Others me Are you on that? But I think I'm confident. Because, I mean, I, at my school, in eighth grade, I did a talent show. And I played ukulele and I sang in front of 2000 people. And not many people can say they did that.

Scott Benner 25:17
That's pretty easy to stand up in front of that many people, isn't it?

Maddie 25:21
No, but it's what I enjoy it for whatever reason. People think I'm crazy when I say to public speak, and I like to, you know, be like out there and open and do well, like the things I like to do. People look at me like three heads, like you actually enjoy public speaking, you actually enjoy performing in front of people. But I like to do in somewhat confident in.

Scott Benner 25:45
That's excellent. I feel the same way. I don't speak in public as much as I used to. But there's something like wonderful about it, like you walk into a room. It's like this big room, there's all these chairs set up. And the first thing I think is, oh, I hope I hope they all come in like I want I want as many people to come in as possible. I want a big like lively crowd. And then you get up on stage and you think I'm gonna try to say something that these people will enjoy. That they'll find interesting. That'll be helpful to them. And then, you know, after that, I don't remember anything. I have such a good time doing it. Yeah. Is that how it felt for you?

Maddie 26:25
Yeah, I'm like, when so my I have a service. That's what the whole thing kind of about

Scott Benner 26:34
Mati. I'll just, this whole thing's about okay, but, but yeah, I do want to talk about your service dog. Yeah. How did you end up

Maddie 26:43
but with she has a bass that actually flat out. So dog, and I have countless people come up to me. That's so cool. So my, you know, my cousin type one, or my daughter was type one or my, you know, whoever's whoever they know, is type one. And they're like, how can I get the service? They, I think they need one. And so I basically talk to them for 1015 minutes, just about, like my experience and know how I went about, what about it? And could no service is that cheap? Yeah. They're pretty expensive for your average household. And so was medical costs on top of a service, that's nine times out of 10. not doable for most people. So I actually, you know, I had a dog in front of me, I'm like, let's try that. Let's try. She's trying her potential. She's wicked smart. She's a poodle mix. So in poodle, the second smartest dog in the world, behind Border Collies, and so I like, let's just try this. Let's see where this goes. Doesn't work. It doesn't work. And oh, well, but it worked. And, yeah,

Scott Benner 27:52
that's amazing. You're just like, well, this is the dog we have. I'll give it a shot. Yeah, what led to that? Well, I meaning Were you having trouble?

Maddie 28:01
Um, I Not, not like I was never hypoglycemic and aware. But, I mean, I eventually, after getting her started to, for whatever reason, I just started not recognizing blood sugars until they were like, 40 Oh, gosh, 40s. But like, the other time, I'm like, 70, like, Oh, I feel like I'm dying. So it's hit or miss one. And I know if I'm overnight after I trained her, but are so we have a German shepherd. And when we got her within six months, she just started alerting to my blood sugars. Like naturally we didn't know why. Like, why she just finally one day woke up and started learning my blood sugar's but she basically has, she would never work as a service like, she is aggressive towards men. Like she will attack them if they walk near her. Because she was abused by men when he got her so that it all makes sense. And she the way she loads, although you could shape the alert on meaning you can change the way that they are. She just would her being aggressive towards men, it wouldn't be worth training her to shake dealer into something that wasn't pulling on your shirt and being obnoxious. And so then I had a dog when I was in fifth grade. He got out was hit by a car and 2018 and shortly after that, I got my my now service dog. She was just sending a pet. She wasn't going to be anything fancy. But she showed her potential she I basically from day one, we just did basic obedience. And we've built that for a year then December 26 2018 2019. Sorry was it Just one year after I got her, I started centering. And she picked it up really fast by about late January, early February, she did her first live load ledger alert.

Scott Benner 30:12
Tell me about the scent training. How does that go.

Maddie 30:15
So I take saliva samples. So when I'm low, as long as I haven't eaten anything within 30 to 45 minutes, in our drinking anything, even if even if it was just water, I don't take a sample as I haven't had anything in my mouth. And so I will suck on a few pieces of like, sterile gauze type stuff, or paper towel that's ever been opened, or like open a new roll of paper towels and use that only for to take samples, I stuck on it for like, three to four minutes. And I spit it in these little tiny bags. And you can freeze them for three months. They're good in the freezer for three months, good in the fridge for three days and good out of the fridge for three hours. So I use the 333 rule. And with those samples, you basically so if you want your dog to alert to you under, if you're under 80, you start taking samples, when you're like in this 50s or 60s, that something really strong, you can build up until you get to that exact number that you want to reach. So mine is shorts between under 80. And above 180. I just find that the best, like range for me, right. And so you, it's kind of hard to explain without being like, demonstrate. But you basically I have these little tiny metal tins with holes in the top and my dad drilled out for me. And these tins have, I put the sample and screw lid on hold up my hand. And with that I just in the very, very beginning, I just had a smell at the second shoe smell that I use a clicker clicked and rewarded with a treat. And we built that up to her pi me. And then eventually her using a thing called a brindle, which is basically they're just a paracord tab that hangs on her collar or a Biothane tab. And when I'm low, she'll she'll call me I'll say hi, hello. And then that was a garbage truck. But so just grab the brindle if I'm low. And that's how she can tell me the difference between high or low.

Scott Benner 32:35
Wow. So you could that's a lot. I guess my first question is, where did you learn this.

Maddie 32:42
So there's, I've read the book called The pain project. I read that before I even got this before I got my current dog. I read that when we had when we had the German shepherd that was alerting, but we didn't know what to we didn't know she was like that aggressive in the beginning. And that couldn't be trained on her. Um, and so with that I had like, I love training dogs, I actually train like do dog training on the side. And so I have basic dog training node. And I found this lovely organization called MD dogs.org. And it stands for medical detection dogs. And she has a free downloadable book. Or you can pay for the updated version through like Amazon or whatever. And she has step by step like steps one through like 20 something or whatever how far it goes about, you know, every little, little tiny steps of progressing from just smelling the tin to smelling and then giving you an alert to the tin to that I'm actually getting away from the samples and doing live alerts to then going out in public and doing all that type of stuff. So she really breaks it down and that's what I followed I just found out the easiest to understand that was even more understandable than the pain project which I thought at the time was really very nice.

Scott Benner 34:08
Maddie the pain is the pain project. P A.

Maddie 34:13
The Ping p i like the endless ping.

Scott Benner 34:16
Yeah. Got it. No, I understand. Sorry. Yeah. She's just like, use Google to do this. You bought a dog or you bought a book. You got a dog you were looking at it like this dog smarter able to do it. You grabbed a book you looked online you found an organization you took some direction and it took you three months to train the dog to do this

Maddie 34:41
well for her to get the first alert got was about three months for just sent work. Geez. Um, but then once the thing you gotta keep up on it and you're reinforced that behavior. So in total from start to finish between just Start finish training because training never really ends. But that initial training to where I would say she graduated from the in training phase to a full, fully trained service dog was about two to two and a half years. From basic obedience day one, when I got her to the time, I felt confident that she was capable of being in public without the entraining patches.

Scott Benner 35:22
Gotcha. Does she ever approached another person whose blood sugar's off? Where's the she has?

Maddie 35:28
Well, she's, like, approached them, but she's alerted me to other people. One time I was in a restaurant, and I saw someone right in front of me like one table in front. And she alerts me and I look, I check, because with what the guidelines are delegation never go off your Dexcom number should always go fingerprick. And that's just because taxon cannot obviously be off. So you always want to double check for the fingerprick it was reading 130. So like, Okay, we'll check in 10 minutes, maybe you're cutting a rapid rise or rapid drop. I check again, I'm like, in the 120s or so I'm like, Okay, you're, you're not right, like you're, there's something going on here. And then eventually, the woman got up to leave. And I was like, Hey, I just have a question. I see. You're typing out. I am, too. So I got the alert dog. What is your blood sugar high or low? Because she's alerting me and I think she's learning you. And she goes, Oh my God, my blood sugar is just in the 60s. Like, that's so cool. My dog just alerted me to your blood sugar, even though I had no idea that you were alone.

Scott Benner 36:32
It's amazing. And that's really amazing. Yeah. I mean, it's amazing. We did it. It's amazing that it works. It's amazing that the dog does it with such consistency. Are there ever times where you're low and the dog just does not say anything to you or no.

Maddie 36:45
There has been a handful of times a past three, three years that we've done, that she's been doing some work. But she has a 96% accuracy. Last time I checked, it was 96%, meaning she got 96 over 100 alerts. Um, she missed two alerts, and she falsely learned to two. Wow, that's pretty interesting. Taylor, but there was nothing wrong.

Scott Benner 37:12
How often does she you're wearing a CGM? He said,

Maddie 37:16
Yeah, I read it next time. And I also had the tandem. Okay,

Scott Benner 37:18
so how often do you like when she alerts you? Do you look at your gear and go yep, she's right. Like she does she matched the gear or she ahead of it? Or how does that work? She's

Maddie 37:29
normally a little bit ahead of it if I'm low. And if like if I'm already high, and she's alerting again, I'm like, like, say, say like 200 and she alert so like, Oh, great. And when my Dexcom catches up and says that 200 and Schallert within like 30 minutes to an hour later if I'm still high, she'll figure your blood sugar out get that I don't like this not

Scott Benner 37:53
because I'm sorry. I didn't mean to cut you off.

Maddie 37:56
Because to a dog. They don't love the smell. They hate this all low blood sugar kind of. But I've been told it sounds like is like a strong acetone snow. So they like to them they don't like that smell. So they basically like especially when I'm low my dad would just keep alerting me because he like fix your fix your snow. You know, it's alright, I don't like it. So she'll just keep telling me which is also leads me into why some dogs don't work out at seven o'clock dogs is simply because they can't they shy away from the smell. I've heard cases of like dogs that are trying to train their dog to eat at their dog and it just flat out don't like the small hides away from the person that's low.

Scott Benner 38:40
So they understand the smells wrong, but instead of coming to you away from it, yeah, yeah. Also dogs could just not be capable, right? Like my dog is stupid. He couldn't do it. I know for sure.

Maddie 38:51
Like a lot of dogs. They might be able to like be like, oh, something's wrong, but not have the drive to tell you. Or the cat was saying the why dog might not work out or dog.

Scott Benner 39:04
Every time basil sits down. When his butt hits the floor. He turns over shoulder very quickly. Like he's astonished at something touched his butt every time. I think is brightness the size of a walnut. So he definitely couldn't do this. I mean, he's surprised by his ass touching the floor when he sits down. Do you see what I'm saying? Yeah, yeah. It actually happens. His butt hits the floor and it's like, what's that? It's your butt on the floor just like it was three seconds ago. Okay, so I don't have the right dog for it. Can you snooze them? Like what if you have a high blood sugar's last thing ours is the dog just up you're tugging on you and pulling you the entire time.

Maddie 39:48
In my experience, I basically just have a train and all done command. Which just means you've told me we're all done. No more treats and they're like getting in every word. And then if you Let me like an hour or so I'll get virtually all done. And so is that consistent, like she's constantly telling me for the two or three hours, that could be High Plus, but she will relearn every couple of every hour. So

Scott Benner 40:18
that's it. That's really insane. So the dog doesn't. I don't mean it this way, but the dog doesn't really care about you. It cares about the treat, it can pay it cares about completing the cycle, right? Yeah, okay.

Maddie 40:30
Yeah, he cares about Oh, I smell this as a total add to tell Maddie that. I smell the smell. Right? She'll give me a treat. And then I can continue on with my life.

Scott Benner 40:40
So she's sort of like, Oh, the smell lady has the food. And then, yeah, beats you up until you give her the food. And that's it. Oh, well, that makes sense. I don't know what I was expecting. But that totally makes sense. What's that word? When you give animals human features in your mind? Hold on Anna. I'm gonna think of it. You don't? You're obviously you don't know. So like, as you're just like, there's a lot of density. Okay, so animal, I'm gonna get this it's like you project human feelings on to animals. There's a word for it. When people do it.

Maddie 41:25
There is a word that I

Scott Benner 41:26
use it yesterday and I'm more poor for dinner

I'm gonna get my Google food was I got it back. I just like I said, I'm sorry, I have it and throw more anthro Jesus, and throw poem. morphism is defined as the tendency to attribute human forms and behaviors and emotions to non human animals or objects. It's key, it's particularly relevant for companion animals. Some practices can be beneficial, while others can be either that doesn't. So it's basically like when someone says, you know, oh, the dog misses me. Or I can tell ya, you know, like that kind of stuff. Like you you give human traits to the way your dog's acting like I you know, people ever hear people say my dog is spiteful. Because you're a nice person. That's why, but like, there are some people who think like, oh, the dog peed on the floor is it's out of spite. He's mad. I'm like, That's the dogs that the dogs, I don't think that the dog doesn't have the the brainpower to be angry. You don't even think he could process anger? Like what do you think,

Maddie 42:42
are some breeds that are more prone to like holding grudges against certain things. So there's, there's actually like when you're what like when you're looking at a puppy to become a service, like you do think you can do a temperament test. And one of the things in the test is seeing if they will. Like if they're holding a grudge against you, if you like, cause some slight discomfort. So it's, the whole test is like 10 different, like, elements. And basically each one and all that sort as well. So threes and fours. It's called the vole hard puppy test. And that's just a test to see what the ultimate like temperament should be of this dog. And it should be performed at seven weeks, but you can, like that's when you get the best results. But obviously, if you don't have a dog, like if you don't have a breeder for a dog, and when the dog is seven weeks old, obviously you can't do that test.

Scott Benner 43:43
I'm not saying that dogs don't have different temperaments. I'm saying that your dog is not looking at you right now planning your demise. You know, like when, when, when Arden says to me, how do you think basil feels right now? I'm like, I don't think he feels like anything good. Like, what? What do you think Basal is thinking? Um, I think he's thinking pant, pant, pant, pant pant. There's the tall thing that brings food. You don't I mean, like, I don't think he's having any, like, deep philosophical conversations. Yes. That's all. Like, like when it rains. Here's one that's funny for you. When it rains, Basil won't won't defecate on the grass. So he does it on our driveway. We're a sidewalk. That's just you know what he does? Yeah, but there are people who would look at that and say the dogs being defiant or something like that. Like he just doesn't like the wet grass poking his butthole Maddie that's really Yes. Yeah, trust me. I've watched it closely. Anyway. Alright. So your dog is amazing. You trained him her Excuse me? Have you have do you have any idea for if this animal came to you pre trained from a company how much that would have cost you?

Maddie 44:55
Probably? Well, if each company does it Little like prices are right below the fray. But MD dogs, because they also produce adequate dogs. But just one woman doing it, she goes like a dog or two every year. But she priced it out around 18,000. Yeah, I've seen, like different organizations priced in upwards of 25,000. So it's a lot. And that's why a lot of people are trained, but some people just aren't, you know, capable, they don't have the knowledge or they don't have well, resources to train themselves. And then second disposition, I really need this, I really needed to have a go dog, but I can't, you know, I can't go 25 or upwards of $25,000 for a dog. And so, you know, that's where people like me come into play where I want to start a business training you guy by their dogs for as little as possible.

Scott Benner 45:56
You'd like to do that as a business. Yeah, like

Maddie 45:59
as a full time career.

Scott Benner 46:00
Is that reasonable to do? Do you think you think you could make a living at it?

Maddie 46:05
I mean, I, how I would go about it is I would start like training all types of dogs, kind of what I'm doing now on what I'm doing on the side. But I would love to eventually, you know, open up a storefront and train dogs. Like, for anything for like, basically beans and stuff. And then do like data for dogs on the side.

Scott Benner 46:27
Well pay for tax purposes. May I suggest working out of your home? Are you gonna be better? Yeah, yeah. But we have four dogs.

Maddie 46:33
So that's a little bit. Like how

Scott Benner 46:35
do you afford dogs? Yeah, I have to. And everyone in the house is sick right now. Maddie, like, I'm somehow the least sick of the three of us that are here. Yeah. And I got up the other morning and had to go let the dogs out. It was time to let the dogs out. And I said to my wife. Well, here's a decision we made 15 years ago coming back to bite me. And they asked, because I was so sick. And the last thing I wanted to do was get up. I was just like, I want to I need to lay here, but I have to go downstairs and take care of the dogs. So I did, because I'm a good person. But, but I actually found myself thinking, I wish at this moment I didn't have a dog. I was so sick. Anyway, I feel better now. Although talking to you is making me warm. Because I don't know if anybody else has had this yet. But I woke up this morning and I was like, Oh, I'm fine. Like I'm back to good. This is perfect. Heads clear. Chest is clear. I'm good to go. I'm gonna talk to Maddie Babak. I walked downstairs to make myself a cup of tea, because I don't want my throat to get scratchy. While I'm doing this. And the process of like warming the tea. I'm like, Oh, I'm feverish. Like it just came right back. And then the other day I was recording something for a company. So it's on the schedule, and I couldn't move it. And I sat down I was like, Look, don't anyone be scared. There's a blanket next to me, you might see me wrap it around myself during this but don't worry, like it won't come through on the recording. And instead sweating like a fire hose while they were talking. Like I looked like I was kicking meth or heroin. Maddie okay, like, they must have been like, Who did we hire for this thing? Because I was sweating like in sheets of water. And I thought for sure I was going to be freezing like that. It's just, it's it's so crazy the way it goes back and forth. I have a question for you. What made you feel like I need a diabetic alert dog?

Maddie 48:34
There's, that's a difficult question. There's not like one thing as like, this is like this is what I need. But I'd say you know having really, really like dangerous like under 20 low blood sugars, like blood 20 as the blood sugar

Scott Benner 48:57
and that happened, how frequently.

Maddie 49:01
Um It happened probably two times in the year before I decided like, like within a year that I had my dog. Before I did I did centering and make her into a diabetic. Gotcha. I remember the one that stands out to me the most is I was in the car. I felt fine. I was out to eat like a really sugary cookie like I might as well just double check make sure my leg sounds right before I get too much insulin check and we're driving our mom's driving home and I look at says lo like oh that's not good. So I just started doubting do this cookie and I'm like well this is let's help I survive this because I don't feel well but I'm under 20 But I found reading like AB something. But you know I fully trust my meter over the axon because the at the time is G five and i i I don't want to go off I've been treating this I'm not. I definitely and then one time, like, right when I started doing the site training, or maybe like the month before, like just looking into like, the, the, like, the likelihood of this working out I was just sitting in the living room not thinking anything of it. And I felt low but not like as that was on me, I was like in the 60s, I was 32. Like, this isn't good, like, and I had like a lot of insulin on board and and this was not fun. And I feel like I'm dying. And so I was like, let's just try to train her as a diabetic, right? Like it would save a save. She saved my life more times than I can count. There's been a lot of lows i She learned to a treat, and up lower. So I'm very thankful that she was there to catch it before I got too dangerous. Like, you know, and I had to use like glucagon or something. And so, and then there's often times before I got her where I was in DK, I was in DK three times. My whole life, I was never new kit diagnosis, but then in 2015, December 2015, June 2016. I was in the hospital twice with DK three times.

Scott Benner 51:24
Maddie are using control IQ from tandem. Yes, you are. And so today modern time like not going back in your life. But right now. Yes, your blood sugar bounce around like that still?

Maddie 51:38
Yeah, it does. Especially because I just started this my current job as a dog groomer. So I'm still getting used to how to manage, like how to figure out my exact ratios for like basil and carbs and stuff while at work. Because it's way more physically demanding. And I'm used to. So like, I've been having a lot more loads lately. Yeah. But, um, yeah, there's never really a time in my life where, like, from now until, like, from prior three or four years ago, till now where my lectures have been perfectly like not perfect, but like, stable or than they are now. Like, there's never been a time where they're stable. And I don't have to worry too much like controller keys just never really worked that well for me.

Scott Benner 52:28
Maddie, can we talk about this for a minute? Are you okay with that? Yeah. Okay. Can I ask how much you weigh? 130 Okay, can I ask what your Basal is.

Maddie 52:42
fluctuates by hour but I can look like right now. It's increased let me go see, because spoken to like he's working. But normally

Scott Benner 52:54
in settings. Yeah, normally,

Maddie 52:57
like right now it would normally be 1.1. Okay. It goes up to like 1.3 Depending on the hour. Point nine.

Scott Benner 53:05
Yeah, that's that's fine. Yeah, the your insulin to carb ratio. One to nine all day, one to nine. What's your correction factor?

Maddie 53:17
One to 50 Most of the time except for overnight 140.

Scott Benner 53:24
That's pretty aggressive. Okay. And overnight, you don't have stability.

Maddie 53:33
overnight. So anytime I'm somewhat stable. Oftentimes, I wake up low. I'll go to bed my lunch will be like in the 200. And I'll wake up in like the 60s.

Scott Benner 53:43
Or lows most of you issue.

Maddie 53:45
And highs are more by issue. When I correct it, they go low

Scott Benner 53:50
highs after food though.

Maddie 53:53
I'm, if I'm giving the full dose then I go low. If I don't give the full dose for the food, like I take say half a unit off and I am stable or like I don't go too high and I don't go low. But then if I you know, gas on food, I'm always high after

Scott Benner 54:14
what would you say? Give me Give me some examples of of like average meals you have during the course of a week.

Maddie 54:23
Well, so I don't eat fruit, vegetables or meat. So I eat a lot of like carbs. So pastas like peanut butter sandwiches. More pastas like mac and cheese.

Scott Benner 54:39
We figured out we figured out the problematic things the Bolus for Yeah. Are these pastas you buy at home or in our store. Right Yeah, restaurant I make at home. Okay. And same with the sandwiches and stuff like that. Yeah, can I make tiny suggestions for you that might make this easier? Um, mean you care not gonna tell you to eat differently? And I'm not going to be like, You know what, Maddie, you should have some Qianlong. I'm not gonna say that, because I don't think either of us know what it is. But little things when you go to the grocery store and you buy pasta Yeah, look for a brand by a company called dreamfields. Okay, it took me a little while to find dreamfields pasta, it impacts Arden's blood sugar significantly less than other storebought pasta, and she went off to college and I saw her with a plate of like bowtie pasta the other day. He crushed it crushed her because the pasta she was used to eating was had less glycemic impact. Same thing for your bread. When you buy bread make sure it doesn't have high fructose corn syrup in it. Like get get a bread that says no high fructose corn syrup. These are like little things you can do to make your your eating style more manageable. Because what it sounds like is happening. Is that your Well let me ask you a question before I say what it sounds like is happening. What happens when you just eat like a regular? Not supercar B thing must happen once in a while right? Does your insulin to carb ratio work pretty well then?

Maddie 56:19
No, I never eat like not high carb count. So I can

Scott Benner 56:28
just a salad for one day or Bolus. I don't eat vegetables because they touched her.

Maddie 56:34
No, because I have this thing called arfid. Restricted food. What is the call? avoidant restrictive food intake disorder? Oh. type of eating disorder basically.

Scott Benner 56:50
How long have you had that? Since I was two. How does it present when you're too?

Maddie 56:58
Extreme egg peeling to the extreme.

Scott Benner 57:01
Say that again? I didn't hear you.

Maddie 57:04
picky eating to the extreme skiing

Scott Benner 57:06
avoidant restrictive food intake disorder arfid arfid. Yes. It's a fun name. arfid. You should name the dog arpha. That would have been hilarious. No, nevermind. Hold on a second, um, people with autism spectrum conditions are more likely to arfid as are those with ADHD and other disabilities, you have ADHD? Yes. Because you don't have intellectual disabilities, because you've figured out how to train that frequent service dog with it with the internet. That's amazing. When children don't outgrow picky eating, okay, so there's a significant amount of foods you're just not up for. So yeah, no, thank you. So then that's fine. But let's try to find the healthiest versions of the karbi food. That's all I'm saying. And so like I'm saying simple steps, no high fructose corn syrup and your food. Places that hides where you wouldn't expect it is bread, pasta, things like that dreamfields Pasta if you eat a lot of pasta, try that brand. It's a black box. I'm going to find it for you because it's going to make a big difference for you, I believe. Hold on dreamfields pasta, I'm trying to get the box up a picture so I can describe it to you. It's like a black box. It has this like little circle logo that says dreamfields in it. There's like some wheat inside of the circle. Yeah, and there's some bread in the box too. Like a red stripe. I'm telling you, if you eat that much pasta is switched to this brand. There's also a way to cook pasta coolit and reheat it where it doesn't impact your blood sugar the same way so a little bit of prep work if you can't find the dreamfields might help as well. But that's it like just try to get healthier versions of the karbi food if you can just with as little processed crap in it and but the high fructose corn syrup is a big piece of it squeezed because now that we've talked about that, like what it seems like to me because your basil can't be I don't think your basil is bad. Right? So you're bouncing around all the time then what I'm imagining is happening is you're counting carbs. But the are you Pre-Bolus thing

Maddie 59:34
I do most of the time when you

Scott Benner 59:37
don't you definitely spike right.

Maddie 59:40
Typically, sometimes I don't like it's it's weird. Like it's weird how it all works. Like sometimes I like Bolus as an eating right after and I don't go up like hardly at all. Is that

Scott Benner 59:51
I wonder if that would be after like long periods of work where you're working hard like a lot of activity maybe? Or something like that. Like, try to look at that like sometimes like, am I getting? Yeah, like is my insulin seem like it's working better after a long day of work than it would if I was sitting around all day? That kind of an idea? Yeah, that might help you a little bit. So because you're you're putting in I mean, you're covering the carbs the way you want with one to nine, one to nine is not a good I don't know what your carb ratio should be you understand, but one to nine is not. Yeah, crazy. It's, you know, it's a little aggressive. But you're also a girl, you get a period, right? Yeah. So there's all that going on, has a lot of hormonal impact your correction factors. What happens if you made that correction factor? I mean, one to 40 is pretty aggressive one to 50 is too but that's where audiences. So it's not crazy. Are you having Maddie, can I ask you if like your periods are normal and stuff? Do you have any weird hormonal stuff going on? Yeah, good. I know, acne? Can't get rid of? Not really not really. Okay. Sorry, I didn't mean to ask you about that. But if you were having something, there's ways to try to get ahead of that game because it could be causing you to use more insulin. Because of that, but it doesn't sound like you're having an issue with that. Does your whole system work? Well, like does the food go in and come back out? Every day? Yeah. I mean, yeah. Okay. All right. That's good to have good digestion. I think there's, I think you could probably make a big impact. by just doing what we said about the food. Yeah, give it a shot. See what happens. If you do it, would you let me know? Yeah, yeah, you would like to send me an email and be like, Hey, I started using dreamfields pasta in my life is better or something like that? Yeah, I can do that. Alright. Do you know about bolusing for fat and protein? No. Okay, so you're not eating? Well, you probably even fat though, right? The pasta has like sauce on it. Not normally. No, just the butter. We're dry.

Maddie 1:02:00
Just butter and salt. I have a high salt diet. Because I pass out without like, because I need a higher blood pressure. So I don't have to so often.

Scott Benner 1:02:09
Okay. Oh, that's interesting. So need more. So yeah, everybody else was trying to avoid it. You're the lucky one that gets stuff more.

Maddie 1:02:16
Like cardiologist like you need extra salt.

Scott Benner 1:02:19
How many people you know many people are finally Maddie, a medical thing of yours that other people are jealous of their like, oh, I would love to put Meursault on my phone. I don't know. I mean, it's obviously it's a lot do you help? Do you get help from other people with your medical stuff? Are you on your own a little bit?

Maddie 1:02:37
My mom's my biggest support. She has helped me since day one of diagnosis. And I'm not in college. So I live at home with her so I'm not really like completely just on my own. Yes, I'm like very independent, and I can make my doctor's appointments like column like prescriptions and stuff. But your condo hasn't been refilled. But those like she still helps me when I need it.

Scott Benner 1:03:08
So tell me what you don't eat again.

Maddie 1:03:12
vegetables or meat of any kind.

Scott Benner 1:03:15
When you say vegetables, does that include french fries? Or do they get past that? That rule?

Maddie 1:03:21
It can only be McDonald's franchise

Scott Benner 1:03:23
so that those happen fairly frequently.

Maddie 1:03:26
Not that frequently. Maybe like a couple of times a month.

Scott Benner 1:03:30
Okay, so how about deep fried things? Do you have a lot of deep fried stuff?

Maddie 1:03:35
mozzarella sticks?

Scott Benner 1:03:37
Do you notice about that? Do you notice a spike that it's hard to control after months or all six?

Maddie 1:03:43
No, actually. Um, I mean, I like I don't have like I I make them in the oven. So if that changes anything, but I never noticed, I guess like I spoke more than normal. When that?

Scott Benner 1:04:01
Well the oven is the key factor if you're not deep fried. If you're not deep frying them then you wouldn't see a fat rise later. Okay, a lot of pizza.

Maddie 1:04:10
Not not like a ton. I mean, maybe like no, that's for like special occasion. Just like randomly here or there. There's a year

Scott Benner 1:04:20
Interesting. Okay, well, I mean just starting with like trying to cut high fructose corn syrup out and switching to a pasta that would be easier on I'd love to hear what happens. Be careful. Because you know, the first couple of times you may not need as much insulin as you've been needing. I don't want to see you get really low afterwards. Yeah, all right. No matter you have to go to work so I feel that you go Yeah, I'm sorry about that. But this is your life is fascinating. I'm sure not to you well to you. You're probably like a lot of pain, but a pain in the ass right? But I'm really there's a lot here that's that's incredibly interesting. You're doing How do you feel like you're doing? I guess?

Maddie 1:05:03
I mean, I feel like this has been my best year with like medical stuff, medical wise. And just like, personal life wise, like my agency's role was it's ever been since diagnosis by doctors kind of, well, my old doctors have neglected me. For a long time, my agency is unreadable for years, like off the chart unreadable for years. And then they just said, Well, you must be doing something wrong. And then they look my company like, well, you know, you're filing everything like we told you to do, but we don't know what's wrong. So we're not going to fix it. So I went to doctors, about an hour and a half, two hours away. So I had to go to every three months, and they literally the first appointment to second appointment, my ASE dropped them to actually readable. So that was great.

Scott Benner 1:05:55
Wow, that's amazing. But what was it when they when you got it down low enough to be read?

Maddie 1:06:01
Um, I believe it went from unreasonable to like, well over 11 point from the owner call point. Something's amazing.

Scott Benner 1:06:08
And that was just the last one that you got.

Maddie 1:06:11
No, that was a couple years ago. Couple years ago. I got was 7.10. My

Scott Benner 1:06:16
gosh. Isn't that great? Yeah. Yeah. That's amazing. I

Maddie 1:06:21
feel like I've done anything different. Well, that was way lower. So like, clearly doing something right.

Scott Benner 1:06:27
You definitely are, I think. I think your next step is just to try to get rid of the lows, like the variability. You don't want to be bouncing around. Yes, yeah. Yeah. Okay, so Maddie, I know you don't have a ton of time to listen to the podcast. But would you listen to just like there's a Pro Tip series that might help you with your insulin. Would you be interested in that? Yeah. All right. I'm gonna do me to send you a list because you're not in the Facebook group. Are you? Oh, you are? Oh, hold on a second. Yeah. I didn't know that. Not under this name that I'm looking at now, though. No. Okay. See? Hold on a second. I can figure things out. I'm smart.

Maddie 1:07:07
I private message. So the fold with insulin, Facebook page. So Monday, Sunday, Sunday.

Scott Benner 1:07:16
So you're in the private group? Yes. Well, I'll just block it out. What's your name in the group? I won't let anybody here. Be? I'm just good. I cut it up. Okay, I got you.

You're not on the pot anymore, right?

Maddie 1:07:38
No, I was from March of 2022. September 2021.

Scott Benner 1:07:47
Do you want me to? I'll find a way to get you this this list of of episodes that I think might help you, like manage your insulin differently? Yeah, and I think that'd be a big deal for you. I think if you stop the bouncing around, that'd be pretty amazing. Okay. All right. Well, if you don't feel any pressure, I just, I'm happy to share it with you. And if it helps you, I you know, I'm happy that it helps. Yeah, I appreciate you doing this with me. Is there anything that we haven't talked about that you wanted to?

Maddie 1:08:15
Um, yeah, actually, just for like, in the US for diabetic alert dogs and service dogs in general. There is no certification. I just want to put that out there. Because a lot of people like businesses especially are like, well, where's your Where's her papers? I'm like, go there. Is that because we're in the United States? And that's not that's first of all, turning the question on, they're legally allowed to ask, but also, that's not a thing. That's like the legit thing. What's actually most websites was trying to scam you out, like skin you for your money and give you this certificate. That means literally nothing, it helps no legal anything. Okay. So, the only two questions is a lot of assets. Is that a service? Are you required by a disability? And what tasks or tasks to change to perform?

Scott Benner 1:09:04
Does that mean that the people who are training them are not regulated at all?

Maddie 1:09:09
Correct, there is what there's one type of like business certification, or whatever that you can get. That basically, is whatever is like, what can regulate the, like, the, whatever my brands aren't working. But it just kind of like regulates the field I guess, but I don't recall it's like something we're in a, like three letters at Stanford or something, but it's basically just to set some sort of standard kind of rule like it kind of like goes through. If a company doesn't have it, then they might be more like they might try to scam you out of your money. versus a company that does have a background check that there are legit place.

Scott Benner 1:10:05
Okay, thank you. We don't want people getting ripped off because they could get the idea that you get the idea that there's a better dog somewhere than another dog. Yeah, and the truth is the dogs either can do the job or they can't. Yeah, okay. All right. I understand. I just sent you the list through the messenger. So you have it. Okay. All right. It's only like, I don't know how many episodes since there's a lot of them. But you if you can find a little time to listen, he'll be alright. I really appreciate you doing this. Thank you so much. This was wonderful. You know, my only regret about this is you. Do you know what it is? What? I can't call the episode mostly. Because yeah, I mean, you have the greatest last name. Sir. Say yes. I swear to you. I think it's fantastic. You hate it. Yeah, I bet you do. Yeah. Is it you're

Maddie 1:10:56
trying to get my mom to get my father to change his last name before they got married?

Scott Benner 1:11:00
Yeah, I bet you and he didn't. He wasn't up for that.

Maddie 1:11:03
Well, he was like, Well, my mom won't like that. And I was like, well, your mother wouldn't have to know. And then he never did.

Scott Benner 1:11:11
He never did. It's a it is a it's a different name. I listen, I don't have to live with it. I think it's amazing. So alright, yeah. Thank you so much for doing this hold on one second for me.

Hey, first of all, huge thanks to Maddie. 18 years old. She did such a good job today on the show. She's terrific. And I thank her. I also want to thank us med remind you to go to us med.com forward slash juice box or call 888-721-1514 To get your free benefits check. And don't forget the private Facebook group Juicebox Podcast type one diabetes, go check it out. It's really It's terrific. Honestly, I think you're going to be pleasantly surprised. Thank you so much for listening. I'll be back soon with another episode of The Juicebox Podcast.

#940 After Dark: Space Musician

Síle has type 1 diabetes and a number of complications. Warning: This episode discusses a suicide attempt.

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
Hello friends, and welcome to episode 940 of the Juicebox Podcast.

Today's episode has a little bit of everything. First of all tell you right up front. It's an after dark episode because at some point, Sheila will mention a suicide attempt from her teen years. But we're also going to talk about her life. She's incredibly funny and a great conversationalist. She's got some type one diabetes complications that we're going to talk about, and she experienced some bullying from a rather unique place. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan, or becoming bold with insulin. If you're interested in getting therapy, you can get 10% off your first month@betterhelp.com forward slash juicebox. To start using ag one from athletic greens, go to athletic greens.com forward slash juicebox. And when you use that link, you'll get our free year's supply of vitamin D and five free travel packs with your first order.

This episode of The Juicebox Podcast is sponsored by Dexcom, makers of the Dexcom G seven, N G six continuous glucose monitoring systems. Learn more and get started today at my link decks comm forward slash Juicebox Podcast is also sponsored today by touched by type one, head over now to touched by type one.org. And check out all the great stuff they've got going on for people with type one. And don't forget their big events coming up in September. I'll be speaking there, don't miss it. Touched by type one.org and find them on Facebook and Instagram. Yeah, we're talking we're not recording. That's stupid. We're recording now.

Síle 2:19
I was like what podcast.

Scott Benner 2:21
I'll tell people who you are. I'm just here to I'm just here to talk about Bruce Springsteen. Tell people who I am. Use your last name. But yeah, you can tell people who Yeah,

Síle 2:31
I'm not going to. My name is Sheila, I am from Ireland. And I have had type one diabetes since 1998. When I was four and a half. I mean, I don't know. Do you want me to tell you how old I am now? Or do you want to like count on your fingers? Or

Scott Benner 2:51
hey, listen, you got a snarky, we just started. Okay. Sorry. You don't know how to do this. Wow, of people just about there's probably a formula that I don't care about it. 98 2008 2018 That's 20 Then 2019 2021 20 233. That's 25. And then you were four and a half when it happened. So you're 29 and a half?

Síle 3:18
Yeah, that's a great.

Scott Benner 3:21
It's not a great method. It's a ridiculous method should

Síle 3:24
know, like, should know. It's I mean, it reminds me of like in primary school when I was like, getting my three kinds tables and I you just you got to figure out your own way to do it.

Scott Benner 3:35
I figure the right way is 2023 minus 1998 plus four and a half.

Síle 3:40
That sounds more complicated,

Unknown Speaker 3:41
does it?

Scott Benner 3:44
All right. Oh, healthcare cares. Anyway, Bruce Springsteen, 73 you're going to see him in concert and you're worried he's going to kick before you get there. Is that what we were talking about before?

Síle 3:54
It was what we were talking about, but I'm less worried now.

Scott Benner 3:58
Because I told you he was 73. Yeah, well,

Síle 4:03
I don't know. And he's in good shape. You know,

Scott Benner 4:05
that's a young person's perspective of 73 years old.

Síle 4:09
Well, it's it My grandparents are in their 80s and they're still

Scott Benner 4:14
can they plow Thunder Road? No, well, there's my point.

Síle 4:23
Can they play a five hour set with no support? I'm not sure.

Scott Benner 4:27
Right. While while looking over their shoulder, John, this Patti woman has really wormed her way into my thing. Meanwhile, I was going to tell you that I love boy, here I go. This is this is like me saying I don't like soccer. I think I don't like Bruce Springsteen. And not not in like, I hate Bruce Springsteen. I actually like all of his music just fine. I just when I was growing up, he was so popular. I mean, it was just I remember being at a middle school dance. I can After school dance, you know what I mean? When people were like 12 and 1314 years old, and we would just stay after school and they would take the lights down in the cafeteria, and DJ, you know, whoever from town would play records. I remember a kid coming in with Born in the USA, like on vinyl. And like taking it to the DJ and be like, you don't have this, but you shouldn't we should be listening to this. And I don't know why it never struck me. But as I got older, I thought, okay, it's musics good. It doesn't hit me like religion like it does for some people. But then recently, Bruce Springsteen did a sit down interview with Howard Stern. And I sat and watched the whole thing, I think on HBO max. And it was really interesting listening to him talk about his life.

Síle 5:49
I agree. I think he's a, I think he's a great dude. And I also listened to his I'm not really a podcast person. I think that first podcast I ever listened to, was the Juicebox Podcast because I went into an endocrinologist appointment, or as I called here, a diabetologist. Appointment. And I said, I want an insulin pump. And he said, Sure, which one and I said, What I don't, what do you? I don't know. I wasn't expecting you to say yes. So I guess I'll go think about that now. And I left and I Googled diabetes podcast or something. And that's when I started. I'm not into podcasts. But I did listen to the Bruce Springsteen and Obama podcast.

Scott Benner 6:31
You know what the problem with that was, is it was boring.

Síle 6:36
It was It wasn't like, groundbreaking, like it was like, it was like listening to like, my dad and his friends chat about, you know, it's like listening to you talk about school dances when you were a kid, you know?

Scott Benner 6:49
Yeah, no, I That's insulting. And now we have to go. I found I found Obama's podcast to be. And Bruce Springsteen being wanted to be reminiscent of two people who have too much to lose to share too much. Does that make sense? Yeah. Yeah. So you got to be willing to say stupid things and, and honest, stuff like that. But I can

Síle 7:14
also understand why.

Scott Benner 7:16
Oh, please, I keep. Spotify has given me this money. So I took it. And how about school dances? Like storytelling,

Síle 7:25
and they have things in common? And they're two people I had never really pictured together. And that's nice for them. No, of course, very sweet. And I wouldn't I don't think I would listen to it again, but was very calming.

Scott Benner 7:41
Yeah, no, I mean, I would sooner listen to Obama speech on father's day while he was running for president was very good. Then I would listen to the podcast.

Síle 7:50
I have to admit, I'm not familiar with. Obviously, I'm familiar with Obama, but I have not paid as much attention to US politics as Americans.

Scott Benner 8:01
I don't even think of his I don't know. He. I like I like his ability to deliver the speech.

Síle 8:12
Oh, yeah. I think everyone agrees. He was like, a good man for the speeches. Very, really amazing. Some man for one, man.

Scott Benner 8:20
No kidding. I also met Bill Clinton once and I understand why people would have sex with him.

Síle 8:25
He's very mad dad had dinner with him once. And he's magnetic,

Scott Benner 8:28
right?

Síle 8:30
I mean, my dad didn't tell me that he wanted to have sex with Bill Clinton, but I believe you

Scott Benner 8:34
he didn't even like say he was considering throwing them out or something like that.

Síle 8:38
I think I was about five when this Oh, yeah,

Scott Benner 8:41
probably not the right place. So let's just assume your dad was willing to do that for Bill Clinton, but didn't share it with you. I'm sorry.

Síle 8:52
I was about to say, let's just assume that and I was like, I don't know if I want to want to go.

Scott Benner 8:58
Alright, so you've had diabetes for quite some time. You are the second person who has a delightful Irish accent that I've heard this week because I just put an act an episode up last week, which by the way, will be six months ago. By the time someone hears this. And it's called haitch ba one C, because that's how she said HBA once every time she said

Síle 9:19
I saw that episode title and I was like, Is that about weed? And I don't know why I thought it was about weed.

Scott Benner 9:28
Just about a lady's accent and and how just delightful it was. Yeah, the first the first time I thought I you have to listen to it. Like she says hey, HBA ones. I can't do an accent.

Síle 9:39
Oh, I like

Scott Benner 9:40
HBA one seat. Yeah, there you go. I should have just

Síle 9:43
I believe you. But so I have lived in in Berlin, Germany for the last five years. So I've developed what we call in Ireland a transatlantic accent, which is because no one can just done when Irish people speak, it's where we put on kind of an American accent so people can understand us. And since I haven't worked in, like native English speaking work environment for the last five years, I do have this like twine.

Scott Benner 10:14
So you're putting on your dialect right now?

Síle 10:18
No, I mean, I'm making a conscious effort to sound less American. But I'm not. I'm trying to tone it down a little, but I'm not. I'm not putting on the Irish. In fact, I don't think I sound Irish at all right?

Scott Benner 10:32
I mean, I can hear the Irish in your voice.

Síle 10:34
During Yeah, during COVID. There was a an American. Who was he? No, he was an English guy. And he was like, so how do you lock it in then? And I was like, what? And he was like, Oh, I thought there was a travel ban. And I was like, Ireland's in the EU. And he was like, Oh, I thought you was American. Please leave me alone. on a train,

Scott Benner 10:57
on a train. Who says with an F? And

Síle 11:02
possibly, I'm exaggerating, but perhaps not. I was like, if anything, you shouldn't be here.

Scott Benner 11:10
So I, I know your name, although in honesty, until you said your name. I was never sure how you pronounce your first name.

Síle 11:19
I get that a lot.

Scott Benner 11:21
I would imagine. Yeah. Because honestly, looking back at it now, I I still don't know how to say it. Like you said your name at the beginning. And I went, Oh my God, that's what this collection of letters means. And then then now I look back at the letters and I my brain won't remember what you said eight minutes ago.

Síle 11:40
So on my first date with my boyfriend, we had like a seven our first date. And about five hours in I was telling a story in which someone said my name so I was saying and then they said hey Sheila, and he goes oh my god okay, thank god that's how you say your name. Was like you can just you can just ask so same applies to you Scott. If you forget how to say my name you can just

Scott Benner 12:07
had Izod found a delightful way to bring it up just now. I would have spent the next hour just avoiding thing or avoiding Yeah, and I would have been masterful at it.

Síle 12:15
It's like It's like Australian like get a Shayla like, you know, she likes it's just, it's just spelled. And

Scott Benner 12:26
unlike the word Sheila. Yeah, yeah. Yeah, your parents a little high when they were younger.

Síle 12:34
No, they just they wanted us all to have Irish names. And my oldest sister was actually born in the UK. And they didn't have anyone to check the spelling with of her name. So she hers is spelled like the, the anglicized way. And then my next sister has like a silent G and her name and it's really long. And she used to cry when she was like learning to write her name because she was like, it's too long. I can't do it. I don't understand. So then they got to me and they were like, Okay, here's a nice simple, short one.

Scott Benner 13:08
Four letters done. Yeah, we pick the artists name out of a book, but I think it's vaguely British somehow. I don't know UK ish.

Síle 13:18
To me. It's like distinct Well, I guess Yeah. Good. Be British. To me. It's like, distinctly a US sounding. But me. Just because I don't

Scott Benner 13:30
know Arden is a unisex given name and an English surname of locational origin is derived from three places thus called in the United Kingdom in York Shire, North riding Shire or the Forest of Arden in Warwickshire. I don't know what any of that means.

Síle 13:48
Cool. I just think of Elizabeth Arden.

Scott Benner 13:51
Yeah, she's passed because everybody's, like, there's a couple of Arden's in the world. And one of them like, I think one of them branded their name Arden II, which is her middle initial. And she was like, oh, there's gonna start a business one day and call it ardente. But now there's now that that exists. So she's like, anyway, so Okay, so you are. Let's say you've had diabetes a very long time you went to your diabetes ologists a diabetologist. I have apologist. That's a really cool word. And, and you didn't know what you wanted? You wanted a pump? What made you after all that time decide on a pump.

Síle 14:34
So I actually had a pump. On my 13th birthday. I started on an insulin pump. And I was so excited because I got to eat. Before that I wasn't carb counting. So from the age of 4x,

Speaker 3 14:48
rapid

Síle 14:53
or Nova rapid or whatever it was back then.

Scott Benner 14:58
You loosen me up Was your signal once in a while I think it's because we're doing the way we're doing it but I hear you now like once you were four then you can go from there.

Síle 15:07
Okay, just let me know I might I can change over to a hotspot or something if

Scott Benner 15:11
it's only happened twice so far not good.

Síle 15:13
Okay. So yeah, when I was diagnosed obviously started on like noval mix 6040 or whatever, you know, I was four I don't remember after that they were like, here's a long acting insulin here is Nova rapid. Take six units for breakfast, six units for lunch, five units for dinner. could not get the concept. It came back to the

Scott Benner 15:42
and you're gone. And you're back. I'm gonna guess right about here seems to be of how long it takes Sheila?

Síle 15:52
Here. I mean, I can

Scott Benner 15:53
hear you. Yeah, you could I couldn't hear you at all. All right, then.

Síle 15:57
I'm going to switch to my phone's hotspot because I lose something of that works.

Unknown Speaker 16:00
Okay. Whereas, yeah,

Scott Benner 16:04
Berlin, internet good. You can manage your diabetes confidently with a powerfully simple Dexcom G seven. Head now to dexcom.com forward slash juicebox. To get your free benefits check and learn more about the new Dexcom G seven continuous glucose monitor. If you prefer the Dexcom G six, you can get it as well. Right at my link dexcom.com forward slash juicebox Dexcom is an easier way to manage diabetes without finger sticks. The g7 is a simple CGM system it delivers real time glucose numbers to your smartphone, your smartwatch with no finger sticks required. Effortlessly see your glucose levels and where they're headed, so you can make smarter decisions about food and activity in the moment. When you go to my link, you can see videos and pictures, find out how to get your free benefits check everything is there everything you need to get started with Dexcom is@dexcom.com Ford slash juicebox. How about the new g7 warms up twice as fast as any other CGM system so you'll have more time with your numbers. It also has a new 12 hour grace period so you can swap your sensor when it's convenient for you. Are you looking for a little backup you can share your data with up to 10 followers. My daughter shares hers with me and her mom and some of her roommates at college. You can do this to dexcom.com forward slash juicebox get some peace of mind with Dexcom there are links in the show notes of the podcast player you're listening in now. And links at juicebox podcast.com to Dexcom and all of the sponsors you got to see this new Dexcom G seven it's so small and easy to use. My daughter's been wearing it now for a couple of months. And I'm telling you it is fantastic. The G seven is super easy to put on to wear Arden can't even tell she's wearing it smaller doesn't stick out as much from her clothing as the G six did and I mean the G six didn't stick out much but the G seven is boys that flat. Just go head to the link to check it out. dexcom.com forward slash juicebox Don't forget about touched by type one.org while you're on the internet, check them out. Fine, I'm gonna get you back to Sheila this episode has a ways to go and a long and very interesting story to tell. Also, Bon Jovi is only 60. But hey, oh, Bon Jovi is only six here. Yeah, you can hear me what the heck yeah, I can hear. Joe Bon Jovi. 60. But he looks like he's 10 years older than Springsteen or 73. Yeah. Interesting.

Síle 18:56
Well, Bruce Springsteen gets organic. So you think

Scott Benner 18:59
that's it? Because they both like, aren't they both like, Italian guys from Jersey from Jersey?

Síle 19:07
I don't know that much about Bon Jovi if I'm honest,

Scott Benner 19:10
to be honest. Wow, Patti Smith looks terrible. Okay, nevermind.

Síle 19:14
Yeah, I saw her a few years ago, but she was still great. She just Yeah.

Scott Benner 19:17
Oh, she's 76. And then I take that back. She looks amazing.

Síle 19:24
So anyway, my diabetes educators could not beat carb counting into us because for six years, we've just been like, No, we take this much insulin. That's what we do. Yeah. They were like, Yeah, but if you go out for Chinese food, you can take more, and they never really said like, you should take this amount. They were just like more. So we were obviously like, what does that mean? No, just take six units. It's fine. So when I was starting the pump, I had to actually learn carb counting. This meant that I could have like chocolatey cereal for breakfast. That was the theory. That was the idea. It was like If you have the insulin pump, you can eat whatever you want. You don't have to have these like 30 gram carb meals and a 10 gram snack at 11 and two and whatever. Those the idea of this flexibility, which these days you can totally have NDI, but at the time was not really what was done. And basically, my a one C was so bad that they were like, maybe we'll just give her a pump and see what happens.

Scott Benner 20:26
What hurt, it could hurt. And

Síle 20:30
they were like, usually we only give the pumps to like the people who show us that they'll be able to make the most of it because it's so in Ireland, the state pays for it. But you have to kind of justify that your that their money is being well spent. But with me, they were just like, No, what are we got left to lose? Let's just give her a pump, and we'll see what happens. So I think my agency around that time was maybe 12 or 13%.

Unknown Speaker 20:55
How old are you at that point?

Síle 20:56

So at the age where I'm old enough to leave the house by myself and go hang out with my friends, but not I guess mentally mature enough that I like, don't eat a piece of cake. Because I know that I shouldn't. Because I haven't taken insulin for it, you know? So I'm just kind of, you know, DNA jour Well, pre pre teen, whatever hormones, rebelling. Listening to emo music and eating. I don't know, whatever I want. And even Honestly, even outside of that, even with like mealtimes and stuff, it just never. It's too it's too long ago for me to now think, you know, was I doing it wrong? Were my parents doing it wrong? Were the nurses doing it wrong? Who you know,

Scott Benner 21:50
you don't know. And there's no way to figure it out.

Síle 21:53
Yeah, I at the time, it was too. I didn't have the analytical skills for that. And it was too I was too, you know, deep in the middle of it. And looking back now, I don't really know. I just know that it wasn't good. And I also I hated checking my blood sugar. And I didn't mind the injections. I didn't mind doing insulin because I was like I made the insulin, it will make me feel better. It means I can eat but the finger pricking I was like, this doesn't do anything. This doesn't make me better. It just gives a number that's probably bad. And then someone will yell at me in. So it was Yeah, I was very excited about this insulin pump. And I'd say for two or three years. My agency was down it was it was the first time I've added a onesie in single digits since a while. And it wasn't like amazing. It wasn't like it was like six or seven, it was probably eight or nine. And after a few years, the novelty wore off. The doctors were saying like, at one point, they were like, are you withholding insulin because you want to lose weight and like sort of screaming it at me in this really scary angry way. And I laughed because that I didn't know that was a thing. I in hindsight, they I don't know. I didn't know that was a thing. But after they told me I sure knew it was a thing. So I don't know if that was the best idea. But I just laughed because I was like the idea that I was putting effort into having a body would see or having bad control, as opposed to just being so depressed that I didn't care what my control was like, and they were all like, you must feel horrible. You must feel terrible. You must feel so sick all the time. And I was like, this is just how I feel like I don't like this is normal. And yes, it I don't feel good. Like I'm severely depressed for 16 year old or whatever. But this is just how it is, you know,

Scott Benner 23:53
were you do you think you were like clinically depressed? Do you think that they were right that some of it was just your elevated blood sugar? Had you feeling terrible? And or do you? What do you think we look back?

Síle 24:07
I think I mean, the fact that now I still definitely suffer with depression, but I can manage it better. And like in healthier ways. I do think I was depressed. And I think a lot of that was coming from things like I guess the isolation, like I didn't really have I didn't know other people with diabetes. I knew one other kid. He was my friend's brother. And he was like, my mom was like, Oh, here's a one C is seven. And now the doctors are like, Oh, you're so good. You should try to get it down to six. And that's all I knew about this other kid with diabetes was that he had an amazing agency. But I didn't know other people with diabetes. So I was kind of like and you know, every teenager feels like no one understands me the world is against me and I think no teenagers more so than those with type one diabetes. So, yeah, I think it was kind of a no one thing but everything all at once fights with my parents about why my blood sugar was high. Was I lying? Was a sneaking food. Why didn't I check my blood sugar? Things like being punished for having a high blood sugar when I was looking at my two older sisters. And they didn't. They didn't have to have good blood sugar. You know, they just their body did that for them. So I was like, hang on a second, you're grading me against something that no one else is being graded on here?

Scott Benner 25:45
Yeah, so So when your blood sugar's were elevated, your parents didn't really know what to do. They saw a person who did better numbers than yours and thought, well, I guess it's possible. She's not trying not for she's lying or something like that. And you're just like, I just don't like, I have no tools over here at all. I have no idea what to do. Yeah. And I'm resistance. I think

Síle 26:04
for them as well, though. Like, I think they they didn't know what else to do. Or they didn't know what else was in their control. So they were like, well, these things that we have in our control. We've done. So the only thing left is her she must be doing something or not doing something right. You know, so I get it. I also get it. From their perspective. I don't think they were maybe as well equipped as parents are these days?

Scott Benner 26:33
Were they were they better at parenting away from diabetes? Or was this the norm for them?

Síle 26:40
Um, I mean, since I moved out of home, we get along great. Since I left the country, we get along even better. But yeah, I mean, like, I don't, you know, they're not perfect. I don't think anyone is, but I don't. I don't really I don't hold it against them. And I don't think that they I think maybe outside of these circumstances if this hadn't been an issue. I don't think there would have been many problems.

Scott Benner 27:23
Your older siblings, but your older siblings have a closer relationship with them.

Síle 27:30
I wouldn't say closer, I think me and my parents are very close. But it's sort of because we were forced to be if you know what I mean. sort of forced to be close through pain. If that's the thing, you know, you and you struggle together you. You just have a you do have a close bond. And then I think also my sisters felt like my parents focused a lot of attention on me as a child. And they were like, ah, Sheila gets everything she wants, because she has diabetes, and they only pay attention to her. And I was sitting there being like, oh my god, can they stop looking at me for five minutes? Yeah. So yeah, it was sort of this like perfect storm of just teenage hormones, chronic illness. Parents, either not having the tools at their disposal or just not being just not being equipped to deal with it. And

Scott Benner 28:26
why does everyone always think that everything's better that someone else has? Why is that? Why is that it's such a fascinating like, human reaction. It is. Yeah, grass is always greener. Like that's better.

Síle 28:38
I mean, at the same time, like at the same time, I try my hardest not to show other people how hard stuff is so I totally understand what they think.

Scott Benner 28:49
Because you think other people are putting their best foot forward all the time. Like you know, it's funny you said data girl, the front of their house looked immaculate in the backyard with like a junkyard. That's hilarious. Yeah. And they and they ran their lives that way too.

Síle 29:02
Like, my sister lives near lives down the street from an influencer? I don't know. Some maybe Instagram. I don't know. And she said that the they're like, their house is an absolute mess, except when they're filming something. So ever notice that? I don't think she knows them that well. She just like she walks past and she's like, Oh, they're filming yoga video today. So they're living room was clean type thing?

Scott Benner 29:31
No, I really is interesting. I used to about that girl. I used to think of it as being very Catholic. They just wanted everyone to know, everything was great. They didn't care if it or you know, they couldn't impact if it was great. They just want everybody to think it was

Síle 29:48
I didn't think of that ever as a Catholic thing. But that's extremely my family's mentality and obviously we are surely a Catholic people.

Scott Benner 29:59
They don't Let's get out of the country if you're not Catholic, right? Like you gotta, I don't think they let you out of the hospital. Don't they baptize you as you're coming through

Síle 30:06
the Well, the thing is, like you joke but actually to go to school, if you want, like, if you want to be placed higher up on the list to get into school, you need to be baptized. Sure, no, I wasn't sure if we'll ever everyone is baptized. There was one kid in my hair who was Jewish, and he was just left out of kinds of, really, yeah, because we do all kinds of activities during school time. Which I find

Scott Benner 30:33
appalling, joke's on you, Ireland, because everyone's so pale that in a war, they're going to be able to see everybody now you're not gonna be able to sneak up on anyone. He's glowing, translucent, white people are going to be coming at everybody. And we're gonna be like, there they are. I see them over there. And the Irish, the Irish, and they're depressed and they're drunk, so we can beat them.

Síle 30:53
They haven't seen the sunlight and 400 days. So

Scott Benner 30:57
do you buy into that at all, by the way, about the depression from Irish backgrounds?

Síle 31:03
Um,

depression in Ireland? Definitely. I don't know if you're familiar with seasonal affective disorder. Sure. Yeah. So that's a thing, like this time of year, in Ireland, and also in Berlin. But it's worse in Ireland. It's like, you're so far north that the sun rises at like, maybe 930 in the morning and sets at like, 330 in the afternoon. So you go to work in the morning, and you leave, and it's just dark all the time. And you never see the sun. And yeah, it definitely, definitely has an effect.

Scott Benner 31:40
Yeah. The whole part of the world, like, so many people that come on here have some sort of background from that part of Europe. And they have autoimmune issues. And I'm always like, what is that about? You don't I mean, like, I don't want to be a thing. It's anecdotal at best for me. But as I approach 1000, people interviewed, it hasn't like, it hasn't slowed my thought down at all. You know, even like, I think,

Síle 32:06
I think as we go along, we're just going to discover suddenly that everything is auto immune.

Scott Benner 32:11
You know, like, I have a large group of people, you know, enough that I'm like, where are you from? And I'm from Minnesota, and then you ask about their background and their backgrounds, kind of like whatever Vikings are. And, and you go and then you start going, Oh, okay, so people emigrated from this one place to here. Also, Minnesota Vikings now I'm getting it. Okay. Like it's all coming together. And I don't know what that means. It's a football team. The real foot. Okay. The one word you kick the round ball, but when you throw

Síle 32:42
with your foot, yeah, you kicked the ball with the foot. Yeah, soccer.

Scott Benner 32:45
You're talking about.

Síle 32:51
But when you were like someone from Minnesota, I was like, I hope he explains what this means. Yes. I don't know where that is. Right.

Scott Benner 32:58
So not the football where they kick the ball with the foot but football where they throw the ball with their hands

Síle 33:02
that like the rugby but less so.

Scott Benner 33:06
More aerial. Okay. We're throwing of the ball, anyway. Yeah, doesn't matter. Point is. I think there's something to it. I just really do possibly. Yeah, Vitamin D deficiency and the anemia and the whole thing. Oh, no.

Síle 33:23
I have a friend from Finland who has Addison's disease. And that is also one of those Nordic Viking countries. Yeah.

Scott Benner 33:35
I mean, I don't think about that. Oh, there's another person. Well, you said Finland, my mind conjured up an image of someone living on an ice float. So I was like, Oh,

Síle 33:43
that's a little bit. Yeah, basically.

Scott Benner 33:46
I don't know. But anyway, so yeah,

Síle 33:50
no, sorry. I'm just drinking the milk carton because I'm wearing another glass of T shirt.

Scott Benner 33:55
As far as it's shook. It's shocking.

Síle 34:01
You can Yeah, I mean,

Scott Benner 34:02
good. Oh, what I was gonna ask you if we can you have the coolest job and I want to understand it, but it's so specific. If you don't want to talk about it. It's okay. Wait, what's your? I don't know, like the thing you say on Facebook.

Síle 34:15
Oh, on Facebook. I mean, I definitely. I don't use Facebook. I only use Facebook for diabetes groups. That's fine. So I mean, just are you looking at NASA, right?

Scott Benner 34:28
Yeah. Is that not true?

Síle 34:30
So I wrote that when I guess when I was in university. I specialized in music technology. And one of my one of my projects in my final year was it was a project based on a specific type of sampler and we had to use either create our own samples or use like free. What royalty free or like you Yeah, license free type stuff. Nothing copyrightable. And NASA has this massive sound library of sounds that you can just use royalty free. So I made a piece of music out of NASA sounds. And yeah, I'm thinking that's what I that's when I, this is dated that so, like over 10 years ago,

Scott Benner 35:24
this is the saddest moment of my my adult life. I'm

Síle 35:27
so sorry. I do actually work in music though I work in music rights.

Scott Benner 35:30
How do I trust that statement? So I have for as long as I've been aware of who you are, can I say what's written here? Sure. Okay. I have thought to myself, This person whose name is spelled in the way that I don't know what it says, is the space musician at NASA. And in my mind, I wish that was true. My mind you sit it like an Oregon, and you play music for people while they work at NASA. And you're telling me that is true. You mother.

Síle 36:04
I'm gonna send you I'm gonna send you the piece of music that I made back then.

Scott Benner 36:10
Can I use it on the pocket?

Síle 36:12
I mean, if you want to do it's all royalty free music anyways,

Scott Benner 36:15
I want to You said that it's gonna be it's gonna be in this. You have discharged me in a way that I didn't think it was possible. So

Síle 36:23
sorry, I didn't realize that you thought that was real.

Scott Benner 36:28
Everything about this is a lie.

Síle 36:31
I'm sorry. So sorry.

Scott Benner 36:36
I have been warmed so many times by the words space musician at NASA. I can't even begin to tell you it's changed my life. I'm sweating now.

Síle 36:48
From the news. You can still you can still hold on to those more memories. No,

Scott Benner 36:52
no, no, no, I can't lie to myself like that. What do you do for a living?

Síle 36:58
I work in music rights. So helping helping like independent musicians, composers, labels, that kind of stuff. collect their money internationally, basically because it's overcomplicated, and I'm gonna. It's not. It's not really designed to help creators get their money. It's more designed to help big labels like

Scott Benner 37:22
ours. Yeah, we've all heard that story. Right? Like you. Nobody gets paid for what they make. Right? You have to go Yeah. So that's my whole. That's your job. How does that be? Yeah, first of all, I'm gonna let it go. That you're big, fat liar. I swear to you, my body temperature has risen like four degrees. I'm like, waving. I look like Scarlett O'Hara right now. I'm like waving air in my face. I'm so disappointed.

Síle 37:54
I'm so sorry.

Scott Benner 37:56
Is that not a job?

Síle 37:58
I don't think Mother I'm sorry to see when you said it. I'm picturing like someone like flying around the universe in a little ship that's powered by playing the Oregon when you were like I pictured you behind an Oregon I was like, yes, in a tiny spaceship. zooming around like that. But no,

Scott Benner 38:16
it says space musician at NASA, National Aeronautics and Space Administration. That it says you're live in Germany. And I'm like, Oh my god. does NASA have a?

Síle 38:28
I'm on? I'm on a. I don't know how to say that in English.

Like, a displacement. What is

Scott Benner 38:37
displacement? My happiness? I can tell you that much. But replacement. I'm not sure what you're saying. But are you looking up English words now?

Síle 38:46
Yeah, displacement, I guess. So I, specifically within music rights, I work in French music rights. Because at University I studied music and French. Neither of which helped me to actually get into this industry. But now that I'm here, I like to tie them together, sort of accidentally fell into French music rights jobs, because I already worked in music rights. And I also speak French. So there's certain terms that I have never used in English, so I don't know what they are. But yeah, displacement. That's the word.

Scott Benner 39:21
Okay. All right. Well, listen, let's get past this. I mean, if we were married, I'd think of leaving you right now. I'd be like, I would understand

Síle 39:29
if I lied to you for our whole marriage about what I do for a living. And you were going around like at family barbecues being like, yeah, my wife, bass musician,

Scott Benner 39:39
idiot, this feeling that I'm learning. I'm a moron. I think that's why I'm upset. I looked at something and my brain was like, That's not real. But I'm like now, a lady on the internet says it is so it must be. Is the other things on the internet that aren't true?

Síle 39:56
I don't know. I feel like we would know. Yeah, you're

Scott Benner 39:59
right. Everything's got it. Be sure we would know. Yeah. So tell me a little Jesus, this is really a letdown. I gotta be honest. I'm so sorry. We'll get past that. I mean, as I keep saying, we'll get past that, and I can't.

Síle 40:13
And we're still talking.

Scott Benner 40:15
The problem is, is that I'm going to shift into some of the things that you that you put in your intake form. So like, you've worked out some complications, and I, it's just, it's hard to go from, like fun to see you have diabetes complications. So what are they?

Síle 40:30
So I think it's actually I don't remember what I said my email to you. But I think it's actually gone beyond that at this stage. So I guess the first thing to come was my eyes. For years and years, the doctors were saying there are changes in your eyes, you know, the beginning of retinopathy, you have to change your get better control, or, you know, you'll regret it. And I was like, Yeah, whatever, I'm fine. So in 2019, I started to notice some black specks and my vision. I was like, I don't know what that is. It doesn't seem great. But my vision hasn't ever been that amazing. Anyway, so it's fine. And one day, I'm in work, and I'm looking at the computer screen, and there's this big black spot on my vision. And I'm like, that doesn't seem good. But I'll you know, I'll see you better at my next appointment. And suddenly, the black spot sort of starts to not expand, but sort of looks like for one have a better way of explaining it looks like there's little worms creeping out of it. And I was like, holy, my eyes bleeding. Sorry, I just swore. Okay.

Scott Benner 41:48
I was just you missed use the term, it's for want of a better term. What did I say for one of a better term?

Síle 41:56
No, I definitely said for one.

Scott Benner 41:58
We'll go back later. And I'll check the whole point. Okay. Probably gonna be the name of the episode now.

Síle 42:03
It's just my accent. Scott, you just can't understand what I'm saying.

Scott Benner 42:06
Like, get to Irish in it up to try to get out of this. That's fine.

Síle 42:11
No, I definitely said the right thing. I don't even know what that would mean, for whatever. No. I went to the hospital. They said, We don't have an eye doctor. They spoken German. I didn't really speak German at the time. They told me to go to a different hospital eventually. And I did. And they were like, Oh, your eyes bleeding. And I was like, Oh, my God, it's been five hours. Yes, I know, my eyes bleeding. And they said, you need some laser colorization, which, I'm sure many, many long term diabetics are familiar with. It's pretty it's, I think, a pretty normal thing to go through. If you have diabetes for a long, long, long time, many decades. But they said you need a lot of it. So I had to go into the hospital every day for about two weeks to have them. Basically, it's like an eye exam where they shoot where they shine a bright light in your eye. Except then there's also like this green light that they shoot more sporadically, and which sometimes hurts. Yeah, I mean, it doesn't hurt all the time. But just sometimes

Scott Benner 43:24
any concern that you're lie about being a space musician is brought these lasers into your life.

Síle 43:30
I think, you know, it was a certain amount of wish fulfillment. Wanted to work with laser ism. Here we are.

Scott Benner 43:38
So these treatments are two weeks you did it for

Síle 43:44
Yeah, every day for two weeks. So usually, I think most people are like, Oh, I had one of those three years ago and now everything's fine. Had it every day for two weeks. Was it was really a hard it's just it's hard to sit there. Like keeping your eye open when you know they're gonna shoot the bright light and everything. And then they did my left eye. My left eye was not so bad, but they were like there's still some we should do it. I went away. Saw my outpatient ophthalmologist who was like, yeah, it all looks okay. But you know, you have cataracts, right? And I was like, What? What do you cataract that's what happens to old people. So anyway, I have cataracts, and that's fine. And I go back to the hospital for my checkup and they do a different type of scan. And they say, oh, yeah, The bleeding has mostly stopped, but you have a bunch of fluid at the back of your eyes. So you're going to need injections. You need eye injections. And I was like and I'm gonna need it Xanax to vodka. And then I show up on the day for my first eye injection and they're like, oh, wait, actually, yeah, your other eye has it too. So you're going to need eye injections in both eyes. Anyway, I do that for six months. I have 12 Eye injections every two weeks. There's one like they alternate the eyes. And I'm like, okay, all my stuff is fine. It's all done. It's great. And they're like, okay, but next we're going to talk about your cataract. And I'm like, yes, people keep saying this to me. So we scheduled a cataract surgery by now it's February 2022. I have my cataract surgery, it goes fine. I guess at this stage, I can't really see much out of my right eye anyway, it's just very blurry. And afterwards, I'm like, my vision is not worse, but it's just kind of whatever. A month later, I get another bleed. I recognize that this time, I go to the hospital. And they kind of say like, it'll probably clear up. And it does. And about a month later, it's cleared up, and then it happens again. So I go back and I'm like, this, this keeps happening. And they're like, Yeah, we think the healing from the cataract surgery is causing your eye to pull on your retina, which is causing it to bleed. And we're very scared that your retina is going to detach, but also we did so much laser a few years ago, that that's unlikely, because it's kind of just welded on there, all that laser, it's probably not going to come off, but it probably will keep bleeding. You need another surgery called a vitrectomy. I'm not going to explain what attracted me is because I don't want any one listening to this to be overcome with nausea. But I'll let you look it up if you want to. So I had that in November. And I'm all healed up. Wow. And I'm having I'm having my next cataract surgery in the middle of this February 2023. So

Scott Benner 46:51
Oh, my gosh, that's so much.

Síle 46:54
It is it's a lot. So that's just my eyes. I recently saw a nephrologist, because my GP had noticed some decreased kidney function. And he just sent me a letter with blood test results. And like, here you have you have these like referral slips and it just for your health insurance to show like, yes, my doctor said I needed this. So you have to pay for it. And he just sent this referral slip with like a lot of exclamation marks and like kidney Reduce function, level three, a kidney disease, whatever. And I'm here google translating everything. Like he didn't send a letter. You didn't say like tiramisu. We found this. He just sent test results on this piece of paper. So I was freaking out. I saw the nephrologist. And she was like, Well, yeah, there is the signs of the beginning, like the beginning stages of kidney disease. But it looks stable from 2018. Like, nothing has changed since then. And I was like, Are you telling me I had kidney disease in 2018? And she was like, Yeah, I mean, your results haven't changed since it's like nobody,

Scott Benner 48:07
how do they mail? This to me?

Síle 48:11
Yeah, so I mean, I, about once a year, I have pretty bad kidney infections. These don't help with the whole kidney function thing. I was in hospital for about six weeks, between hospital and bed rest for about six weeks and 2018, which I guess is when they did those tests. So she basically said to me that stage three A is like the very beginning means everything's still working fine. I don't need a special diet or medication. But I should keep good control of my blood sugar. And I can probably stay at that stage forever if I'm careful. And even even if I go to stage B three B, I can it's still kind of fine, you know? So I'm not supposed to take ibuprofen, but aside from that, it's okay. But it's still it's a lot. She was like, even once you get to stage three B you could stay there for 20 years, and I was like, doctor in 20 years. I'm only 49. And she was like, Yeah, but you're not there yet. So you know, you'll be fine.

Scott Benner 49:23
Great. Yeah, I remember thinking when somebody told me diabetes, complications don't start for 30 years. I thought, Well, my kids too. How was that comforting? Yeah. Not even to say that anything's gonna happen. I just like, why we I don't know. It's a weird thing to say. But

Síle 49:41
what's weird is that these days and I see so many people worrying about the complications that their child like they're saying, like my, my child is three they've been diagnosed we have, we have an omni pod and a Dexcom. And I'm just so worried that like, my child is going to have these complications. And I'm like, we actually We don't know what the complications are like 30 or 40 years down the road for kids with Omnipod sundecks comps, because we're not we're not that far yet. Like, the people who have complications now. 30 years down the road. They were diagnosed in the previous century. Like it's not Yeah, they

Scott Benner 50:16
came up with like, mph and regular and stuff like that. Exactly. Yeah. Three times a day. Yeah. Can I ask you a question without? I'm not. I'm not saying like, tell people what you did wrong. Because I think that your point from earlier as well taken like, I think things just happen the way they happen. But in hindsight, do you see where you were, if something would have happened differently, you might not be in this situation.

Síle 50:49
And I think, I mean, when I listened to, like, honestly, the thing that got me to take control, because obviously when my eyes started bleeding and all that, I took it more seriously, but my a Wednesday, a Wednesday was still maybe seven or eight. It was a bit better, but like it wasn't, wasn't where I wanted it. What actually made me take it really seriously, I did not even take it seriously, but just get better at managing it was hearing the way that you speak. And I mean, I went right back to the start like episode one. airing the way you spoke about Arden's diabetes was so like, I know she's your daughter and everything. But it was so separate from you, you know, you were like, it's this objective thing. And one plus one is two, and I do this and I give the insulin and I do the Pre-Bolus. And it wasn't this personal thing. It wasn't like, oh, life was unfair, and I have to take insulin. And it was just like, an equation almost. It was like, you know, this is how we do the thing. Yeah, step by step. And it was very, whereas for me as a kid, it was like this personal attack on me, like every time I checked my blood sugar, and it was high, which was almost every time which you can understand why I didn't want to check my blood sugar. It just felt like this, like, moral judgment of me like I've done something wrong. Like I'm a bad person. But at the same time feeling like this isn't fair, because I didn't mean to do anything wrong. Like I didn't want to do anything bad. So I think the more hands on, parents approach hands off child approach. I think maybe they tried to involve me in decision making a little too young.

Scott Benner 52:47
I've heard that from people like their,

Síle 52:50
I know a lot of people are like, oh, I want them to understand their care and whatever. And if that's working, that's great. But if it's not working, I would say something needs to change. But I mean, also my my care team in Dublin, I have this like one one nurse who really stands out in my mind. And it's funny, because I think back to things that she said, and I'm like, Oh, she was right. I just didn't listen to her. But she's probably the only one that I want to think about it. I'm like, I should have listened to her. The rest of them were just kind of like, you're not doing good enough. And you need to change these things and

Unknown Speaker 53:29
like, not helpful. Yeah. And

Síle 53:32
they were kind of just looking at readings and being like, you need to increase your insulin here. And I was like, You don't know me? You don't know what I did that day. You don't you're asking me what I ate on July 18 2019. And I don't I don't know. So I always kind of just felt like, these doctors don't know what they're talking about. So I'm not going to listen to them. Which was partly, you know, my own childish arguments, and also the fact that they like even looking back now and like where those doctors didn't know what they were talking about.

Scott Benner 54:06
Don't you think it's obvious to even do a kid? Like when somebody doesn't know what they're saying? Anybody with a half tuned both detectors, like you made that up? You know, like you knew what to do? You would tell me? Like, why are you just telling me I'm doing it wrong, and not finishing the sentence and telling me how to do it. Right.

Síle 54:27
Yeah, and it's like, there were so many times and I can remember it now so many times. When I was a kid where I was like, I wish someone would just take over my diabetes for me, like, just do all my do my finger pricks do my injections, just that like I don't have to think about it. I'm gonna think about it. Now. I'm like, That's what parents these days are doing.

Scott Benner 54:47
Yeah, it's funny. You know, Arden's at an age now where she's basically like, I have it. Leave me alone. I got it. I know what I'm doing. Like that kind of stuff. Right? And I'm like, okay, good. You know, like, that's fine. But every once in a while She'll come back from college. And we'll just be I don't know, in a restaurant, for example. And she just kind of looks at me and just slides across the table. Why don't you Bolus get it meal? Yeah, keep me out of this for this one. And so yeah, I mean, it's good. It's all? I don't know, I have a lot of questions. For one. Here's my biggest question. Do you think that for the want of a space musician is too long of a title for an episode? Because I'm afraid it's gonna get cut off in the player.

Síle 55:36
I don't think I mean, because most of them do the scroller thing, and

Scott Benner 55:39
I'm thinking hard about it. I really think that's the way to go. Being honest. I mean, the one.

Síle 55:45
I mean, you could also I was gonna say you could you could say, for the what of a space musician? Yes.

Scott Benner 55:51
I don't know if people would get that.

Síle 55:54
They just think like, oh, because that's not what I said. So

Scott Benner 55:57
people would just assume it was a typo, don't you think? Yeah, that's maybe Hey, also real quick. So I know about like, 10 minutes ago, you said your last name. You'll may take it out when I'm editing. Oh, yeah. All right. Well, don't worry.

Síle 56:10
I mean, I don't think anyone I know listens to this. But we haven't said anything. I don't. Well, I mean, I wouldn't want my parents to hear this.

Scott Benner 56:20
Okay, that's interesting. Why?

Síle 56:23
Just because I, we don't you know, we're Irish and Catholic and repressed. And we don't talk about things like that. So

Scott Benner 56:30
yeah, I was crying the other day, because my son left. And I watched my wife look right through me. I was like her Irish won't even let her talk to me right now.

Unknown Speaker 56:42
Yeah, no, we don't do that.

Scott Benner 56:45
I tell you what I cried about,

Unknown Speaker 56:46
what did you cry

Scott Benner 56:48
about. So I like cooking for my family. And interesting. And I like to every once in a while, like, when I have a little free time, the way I usually unwind is to make cookies for the kids. And they don't even as they get older, if I'm being honest, they barely them. Like sometimes they just sit there and get thrown away later. But I get an immense amount of happiness out of making the cookies. And so my daughter's way at school right now. And my son just moved away really far for a job. And we have some things that every time, every time somebody leaves the house, they leave something behind. So we have these boxes of like little things that have been left behind that I'm getting ready to mail to

Síle 57:34
me, I've been abroad for five years, and I still have stuff in my parents house, right? Well, your

Scott Benner 57:38
parents are lazy, or they would have sent it to you by now. So I have these boxes of little things that are gonna get sent to the kids. And I thought, Oh, I'll bake cookies and put them in the box. So I'm making the cookies. And it doesn't feel the same. And I'm mixing them and putting them on the pan. And it just doesn't feel right. Like the whole thing feels wrong. Like I'm not getting any of the I don't even know what it is like I can't ask that. Now I'm standing there at the oven thinking what is it? I even enjoyed about this? Like, right, like, it's like, I'm not enjoying making them. I am not going to eat them. i Why did I like cooking for them when they were here in the house? The kids? And why is the fact that they're not here, robbing this experience of every bit of joy that it used to have. And I start to cry. And then my Irish Catholic wife looked at me and pretended she didn't say it

Síle 58:45
I'm not gonna lie when you were saying like, Oh, and Something didn't feel right. I thought you were gonna say like, and then I realized that I switched the sugar and the salt or you know, something that you had just like,

Scott Benner 58:57
No, I meant or metaphysic No, you just emotionally wasn't like it just in my heart. The task was empty. Yeah, and it used to feel so wonderful. And that wasn't the point the story the point of the story was watching Irish Kelly look at me like oh, he's crying. Just look away so I'll have to deal with this.

Síle 59:20
Yeah, no, we don't we don't do that. I mean, I cry all the time. It's like one of my big pastimes is having a good cry but I'm on your own. Oh liquid whatever on my own with people like I you know, and I will I will cry in front of my parents no problem, but I would not do so or I wouldn't. I wouldn't want to do so well bringing up something that they did or didn't do. Well, you know, like them being the reason that's more the part I mean, the talking than ever, or saying like, Oh, hey mom and dad if maybe you had done things differently. I wouldn't have kidney damage now or, you know, I'm like, they don't need that, either, if I want it like that you

Scott Benner 1:00:06
also don't blame them, right?

Síle 1:00:09
No. Yeah, exactly. It's just, it's just different. Like it was different. And I think I mean, during the pandemic, I think a lot of a lot of couples separated. And I think those couples, maybe if it weren't for locked down, and whatever, I think they never would have separated, and they may have gone on to have very whatever happy normal lives, if they had never gone through that period of like, extreme stress and pressure and confinement, which is not to say that, like it was meant to be, or it wasn't meant to be or whatever, I just think that sometimes you can't take the pressure and you don't stand up to whatever it is, that's thrown at you and doesn't make you a bad person or whatever, just

Scott Benner 1:01:02
right. I think just anyone what it is during lockdown, who didn't think I wonder if we're gonna make it out as wasn't being honest with themselves. If you didn't think that I mean, you're married and you didn't think that you want to be honest with yourself?

Síle 1:01:14
I mean, do you want to hear something horrifying? On October 2 2021, I was supposed to get married. But six months before that, my ex was like, I can't do it anymore. And I was like, What are you talking about? Like, we just came out of winter, obviously, everything's terrible. His sister and her friend moved into our two room apartment for four months. Just over the winter, like when there was locked down, couldn't go outside. Berlin is super dark. In the winter, everything. Everyone was depressed, don't get out of bed in the morning. And after the kind of winter was done, he had a thesis deadline coming up all this kind of stuff. And he was just like, oh, I can't take it. And I was like, you're just letting like, you're depressed. That's the pressure talking, you know, summers coming, it'll be you know, you'll feel better. You'll submit your thesis, like you'll the pressure will be off your sister has moved out of our apartment. It'll all be fine. Just like, let's just talk about it if you want to take some space and like, I don't know, maybe go back to Ireland for a while or whatever. And he was like, No, I'm done. I'm gone. And he's still done and gone. And that's, you know, I was kind of like, oh, he'll be back. I'm super angry. But he'll be back and know that chapter is closed. But I'm like, if that pandemic never happened, I'm pretty sure I wouldn't be married right now. And it's okay, that I'm not and I'm, you know, I'm happy with my life now. And I am with someone new, and it's all good. But

Scott Benner 1:02:53
yeah, cuz he might have just divorced you in the middle of it, then. Six months, and he might have been like, that might have been more pressure. Wow. See, that's

Síle 1:03:04
the weird thing is that I do think the whole concept of marriage or whatever was the catalyst that like, Oh, God, I can't do this. But the thing is that, like, six months before this fortnam, not even six months, let me think. Yeah, six months before this, we adopted a puppy. And I'm like a puppy is way more commitment than marriage. A puppy is gonna live for like 10 or 15 years. Yeah. Exactly. So I mean, he was just like, you, you keep the dog, whatever. She's yours. So

Scott Benner 1:03:43
you keep what a war. Was he also Irish sort of warm conversation you had? Yes, exactly. Seriously, I'm leaving. Okay. That's it.

Síle 1:03:55
I'm just like, it's I sometimes I think about if it weren't for this weird moment in everyone's lives, I would probably be living a very different life right now. But that's okay. Yeah. Who's to say whether that is good or bad. So, I mean, to bring that back to the diabetes, it's like, you know, it is it is what it is. We love to say that in Ireland is what it is. And Sherlock, there you are. It is what it is.

Scott Benner 1:04:25
Where do you stand on? We're very

Síle 1:04:27
resigned. We like to just, we like to just say like, yeah,

Scott Benner 1:04:31
I don't I don't know how to explain it. I've had so many interesting moments. Like I have my my wife's father, who you know, I think is a comes from a pretty strictly kind of British background. And the mother's Irish I mean, they're just mixed right in there. And the mother, my mother in law is like the mother I just said it like I was pairing up puppies. Like I was like, You're gonna love this one, the mother's Irish and just Though I've seen them have conversations where one of them has said something emotional, and then everyone gets upset. And then then I get blamed for having a conversation that let somebody say what they thought out loud. They're like, it's

Síle 1:05:14
like you, you Americans, you just say your feelings all the time.

Scott Benner 1:05:18
It's his fault. I'm like, Well, you said it. Not me. Also, I'm not involved in this. But it is really my son has it from my wife. But Arden's Arden's quiet right up until she's me. And then she's emotional. And my son's quiet right up until he's me and then he's goofy. No, it's interesting. So but where do we stand on this? Source? See? Ronin girl we okay with her.

Síle 1:05:49
See her Sharona? Yeah,

Scott Benner 1:05:52
I like her. But I don't know how you feel if like you're from the place.

Síle 1:05:56
Um, I think she's grant. I don't I'm not like a big fan. I don't I'm ambivalent.

Scott Benner 1:06:04
Whatever. Have you. I hope yours. Good news. Shun hate you. Unlike Yeah, I don't really know anything.

Síle 1:06:17
Yeah, it's more like who am I to judge? You know,

Scott Benner 1:06:19
oh, that's a lovely, your generation statement. Young people want to attack anybody.

Síle 1:06:28
I mean, I love judging people that I know. But people I don't know. I don't feel generalization

Scott Benner 1:06:33
is the basis of all that is good and fun. And I don't know why. Why young people want to good podcast, by the way. He can't. You have to be able to just randomly say something and go. I don't know. But I don't like that girl in that movie.

Unknown Speaker 1:06:50
Yeah, yeah.

Síle 1:06:52
I just I feel like every time in my life when I've sort of taken a stance on not liking something a few years later, I've turned around and or has, you know, I've met someone who I like I admire or I agree with on lots of things. And they're like, oh, no, that thing actually, I really liked that. And I'm like, Why do I hate this thing? And then I give it a second chance. And I'm like, actually, this is good. So I just, you know,

Scott Benner 1:07:12
I think that's good, though. Because it lets you see that you had a strong feeling about something for no reason. And then, but if everyone walks around being milquetoast all the time, then you're never going to have a you're never going to take a stance on anything. So you won't be able to look back later and go, Oh, I was wrong about that, like me with.

Síle 1:07:30
I'm very pro being like, I'm very pro having very strong pro stances. So I'm strongly Pro.

Unknown Speaker 1:07:39
You're pro Pro.

Síle 1:07:40
I'm pro Pro. Yeah, I think I just think it used to be cool not to like things and I think it should be cool to like things again, you know?

Scott Benner 1:07:48
Yeah, no, I think that's a great idea. I but I mean, a good example of like, I told you, I listened to that Bruce Springsteen interview. And then after that, I listened to more Bruce Springsteen music in two weeks, and I'd heard my entire life. And so he got me, he had a good story, and he got me and I wasn't mad at myself for having spent my whole life not listening to Bruce Springsteen. And I, you know, I was just like, alright, well, I guess this is the thing. I don't love it still. But I mean, I don't understand why people go to every Bruce Springsteen concert they can.

Síle 1:08:22
Because you never know if he's going to make it to the next one.

Scott Benner 1:08:25
This is just you being funny. Yeah.

Síle 1:08:29
I mean, he did. You did a he was on who said guy? Jimmy Fallon, the guy who likes Ariana Grande.

Scott Benner 1:08:40
Jimmy Fallon, here's this to this person. You're the guy who likes Ariana Grande. Well, it's just

Síle 1:08:46
so I really love Ariana Grande. And so that's kind of I think the most Jimmy Fallon content I've ever watched is when he has Ariana Grande on which is, weirdly frequently. So

Scott Benner 1:08:58
I just imagine that Jimmy Fallon believes that whether you love him or not, people know who he is. And that if he heard that he think this person has no idea who I am other than to say I'm the guy who likes Ariana Grande. I love that idea. Oh, I hope or else

Síle 1:09:14
you'd be like, Who's that weird German girl. She doesn't know what she's talking about.

Scott Benner 1:09:18
You're not even German. Stop it. No, I'm

Síle 1:09:20
not. But you know. Ya know, Bruce Springsteen was on Jimmy Fallon. And he's talking about the lyrics to find a road and the argument over whether the lyrics are the screen door slams, Mary's dress sways or waves because apparently the crowd is divided on this. And he said he's talking about like, how meticulously he went over everything at the time and how he was like a real. He was really neurotic about every detail, and how he went back to settle the argument and he opens a sleeve and he's looking at the lyrics. And it says, Mary's dress waves. Eddie turns around to Jimmy Fallon and he's like, the book is wrong. It's waves. Just I love him. He's just I don't know, he's like,

Scott Benner 1:10:07
can I ask a question? That's weird. Sure. All right. Do you find yourself in your generation looking at things like music, for example, where a song is super catchy? And then because of generations of people being more sensitive to certain things, the thing becomes persona non grata all the sudden, like, what was that Christmas song that we can't sing anymore? Baby, it's cold outside.

Síle 1:10:38
Because I thought you were gonna say fairy tale of New York. I think all the Christmas songs are just canceled now at this point.

Scott Benner 1:10:43
Right. But like, I can't, we can't sing baby. It's cold outside because some people say that it seems like this guy's getting this girl liquored up and keeping her in his house.

Síle 1:10:51
Right. And I think people got over that one. But I know what you mean. Yeah.

Scott Benner 1:10:55
Or like, there's some, like, there's some songs, right? Like, was she's 16 she's beautiful. And she's mind being sung by a guy who's way older than that. Like that. Yeah, but you don't care.

Síle 1:11:06
I mean, the big one, I guess for my generation was probably Blurred Lines. The Robin Thicke one, it's got some

Scott Benner 1:11:16
isn't even on I think, because of how he treated people on the set. While they were making the video though.

Síle 1:11:22
I think it was the lyrics. I remember at the time, I was kind of like, I don't really get this, but student unions are trying to have a ban on campuses, so I'll just go with it. I mean, I thought it was a cool song, but I wasn't not enough to defend it. You know?

Scott Benner 1:11:40
Yeah. I, I would not defend Robin Thicke as I don't know about him. But I would tell you this, he doesn't seem smart enough to write something thoughtful.

Síle 1:11:51
No, I mean, there was there was just there was apparently in the lyrics. There was a lot of stuff about like, Oh, that was I mean, it's all in the title of the song, but Blurred Lines, kind of the idea that, you know, like consent, and so I think you realize, I think, yeah, all right. That was the whole thing. Can I tell you something wasn't?

Scott Benner 1:12:09
I've heard that song a billion times. I never, I didn't even listen to it close enough to know that.

Síle 1:12:15
I've talked about this. I mean, I feel like at least three or four times in my life, and that's the first time that I made the connection.

Scott Benner 1:12:21
Yeah, I'm not. But this is back to the Jimmy Fallon thing. That is Robin Thicke somewhere thinking that everything he says out loud is consumed by his fans and understood completely I listen to on a smaller level. I do that sometimes. How am I go? I already said that on the podcast as if that means everyone's heard it. Yeah, I mean, it's a weird thing. Anyway, this isn't the

Síle 1:12:44
I don't have fans or listeners. So I don't think about this. You have

Scott Benner 1:12:47
me I was a huge fan of yours. Seriously, it's really depressing. But I'm sorry. But I will send you my

Síle 1:12:57
space music. I actually have it I have a second, I have a second track of space music that I can send you.

Scott Benner 1:13:02
I want this. It's literally going to be on this episode. Give it so that I get it goes right on this episode. we've skipped over one big thing in your notes. Are we going to talk about as we can. So it's, you know, I don't know, I guess people say trigger warning and stuff like that. But I can never remember to do that. I apologize. But

Síle 1:13:24
I mean, I think you brought it up already, during the conversation, my trigger

Scott Benner 1:13:27
this week, because I have interviewed a lot of people this week who have had suicidal thoughts or attempts. And I don't know what happened that they all got clustered together in one recording week. But did you have thoughts? Or did you try?

Síle 1:13:46
So I realized I never finished the bed about the insulin pump was that I had it till I was 17 or 18. Basically, the doctor said, this is costing the state more money than we can justify with your results. I said, I don't care. I don't give a shit. I'm depressed, whatever, take it away from me. I can use pens to do the same thing they did that was that for 10 years till I went to my German doctor and I said, Hey, I want an insulin pump and was expecting to be fought on it saying like, Oh, we reserve those for the best diabetics. And he instead said, Well, what do you want? And I wasn't expecting that. Anyway. I know, on Omnipod and everything and close looping and everything and it's all great HBO and CS 5.6. But back then, back in the days when I had my old wired insulin tubes, I guess they're not wired tubes. insulin pump. Yeah, I'm trying to remember now. So when I was 14, so I guess I had the insulin pump for about a year and a half.

Unknown Speaker 1:15:00
Like as I was a kid, it was

Síle 1:15:03
it's weird to think about it now because it doesn't happen anymore. But anytime we had a family dinner, so anytime we went to a restaurant or like sat down on a Sunday or whatever, there would always be some point in the, in the conversation where my family would like, try to wind me up because they knew that I mean, in hindsight, again, being a child with a high HBO and see high blood sugars, it's pretty normal. I think that I was moody is not the word, but like, I, you know, I was easy to anger I, I didn't have tantrums. But I just I would get angry, like, you know, deep in my bones like red flaming, angry. Yeah, quite easily. Which is not something that happens now. So again, I think I don't think that's all, you know, maturity. I think that's there's definitely a very chemical element of, Oh, I agree, my blood sugars are in control. So anyway, it sort of became the game of like, who can make Sheila angry during dinner. And I being a child, was not. Like, I was not aware enough to stop myself playing into this, you know, I think as an adult, you go to dinner with your racist uncle, and you sort of just sit quiet, or you know, you don't, you don't play into it. But as child of like, this kind of happened for as long as I can remember. So as a child of seven years old, you're not going to sit there and be like, Oh, I'm gonna be the bigger person that not, not given when my dad is teasing me, you know. So this every single meal, every time we went to a restaurant or tried to have like a nice family evening, every single time there would be something. And someone in the family would say, like, oh, Sheila, relax, they're just trying to wind you up. And this doesn't really, I don't think that's a reason. That's like saying, like, oh, he was only joking, don't you know. So I would play into it, every time I would get angry, I would storm off crying to the bathrooms or whatever. Or else, either either I would get angry and storm off crying, and someone would come and get me and be like, oh, you know, they're sorry, and whatever. Or I would end up like yelling or something, I would get in trouble. Like, my parents would yell at me. And I would go off crying and whatever, sort of same result anyway, not good feelings. So I'm 14 ish. insulin pump for about a year and a half at this point, I guess. And I've just finished I did this sort of, like science exhibition competition thing, which ended? Well, it involves, like, you know, you prepare a project, and then it's judged and whatever. But it basically involves like a week of activities, socializing with the other competitors, like that kind of stuff. Very little parental supervision, whatever. At this point, in my life, I have already started drinking, because in Ireland, it's not so much that everyone does it. But it's very easy to do. I was at this point, like raiding my parents alcohol, I realized that it was not a not a good feeling. But you know, I mean, the way that people these days who are addicted to alcohol, they like it, because it's a form of like, it's a way it's an escape. It's a form of escapism. As a 13, and a 14 year old, I was drinking to escape my day to day life. So as a 14 year old, I met my science competition. I I'm with all my friends, I've made loads of new friends, we're drinking at this, like, you know, discover whatever. And when that week comes to an end, and I'm suddenly thrust back into like, Oh, I'm with my family every day, I'm with my parents all the time, parental supervision. And it just like something kind of snaps, we're having dinner, it's a Sunday evening. And like, we have whatever the fight is at the dinner table. I've run out of the house. I don't I don't take anything. I don't take my phone. I don't take anything with me. I just run out I go for a long walk. I'm very upset. I'm like sitting on a pet bench in a park. It's like 9pm not really a time that any 14 year old should be out in the park. I'm just sort of sitting there being like, I'll show them you know, like, I'll show them like I'll teach them a lesson like Oh, I'll teach them to be so mean to me, and to upset me. And I just, I don't even know how much it was. But I think I took like 120 units of insulin, oh, my God just sitting there. And I had done a site change that day. So it's like fresh cartridge, fresh everything. And I don't know what it is that I don't have any pain with the Omni pod, but back then, if I did more than like five or six units, it was it was painful. I think it also injected much faster than the Omnipod does. That's possibly why. So I think it wasn't, wasn't fun to inject. And there was I mean, there was a, whatever a Bolus limit or whatever. So I think I had to do like several. I have to input like several rounds of I don't know how many units Yeah. And then I just kind of start walking again. And, and obviously, I'm starting to feel the effects now of the low. And as anyone will tell you, with, if you wake up in the middle of the night with a low blood sugar, you eat the whole kitchen, and it was sort of like that. In that I stopped thinking about like, you know, my, my brain went into like survival mode, it was like, okay, stop, stop, stop with those depressed, whatever. Metaphysical, depressed intellectual thinking and just get some sugar, you know, get some food. Stop thinking about your feelings, just get food now. So I'm walking past a supermarket, I go in, I buy a bunch of stuff, I don't even know what it was. I eat it. And I don't like the math doesn't work at because 120 units of insulin I didn't even know. But as we know, insulin sensitivity is not linear. For me, when my blood sugar gets low, I become extremely insulin resistant. Which is great for me. Because once I hit about like, I'm trying to think in American figures here, once I hit about 50 It kind of just plateaus there. It's very rare that I go below that because my body just is like no, no insulin no more. So I guess that helped. I guess my liver helped out? I don't know. So I go home, I sit in the garden for a while. I think I also set a temporary Basal, right, like I don't, I haven't thought about this and so long that it's like, it's, it's not the kind of thing I like to think about all the time. So the details are gory. But I think I also set a temporary Basal rate of like 200% or something, and then you know, I get in trouble with my parents for running out and telling them where I was going, taking my phone, whatever. And I go to bed. And I get up the next morning and I still obviously feel like crap because yeah, but obviously when you your body like it was like a hangover, you know? And it makes with everything else.

Scott Benner 1:23:30
Plus, how you felt that led up to

Síle 1:23:32
Yeah, yeah, and it's like my brain you know, my blood sugar had stabilized enough that my brain was back to like, Okay, we've sorted out the emergency we can go back to thinking about our like, non What's that the Hierarchy of Needs thingy? It's it was it was that basically it was like okay that this this thing is gone. So now we can think about this thing. So I'm I go to school and I'm still like, Jesus, like I just do not want to be alive like I can't deal with this. And I'm I was very like, what's the word like? I don't know, like high achieving like a school student. I always put a lot of pressure on myself in school so school was generally a stressful place. So again, I am I'm in school and again I just take like masses and masses of insulin and and I get home I don't even know like thinking back on it now with the these events don't make sense because I like I would have had to eat so much and I don't think I did. But I get home somehow. in one piece. My mom is at work. and I go to my room to see, I go to my room to see all the vodka bottles lined up on the bed. And I'm like, gosh, she's, she was cleaning my room or something, you know, which is not something in our house, it was you clean your own room, there was none of this. You know, mom did not do our lawn, but I'm sure she did her laundry at some point. But at age 14, I was doing my own laundry, I was cleaning my own room. And I'm there going, like, I don't know what she was in here, but I'm in it. Now. There's no getting out of this. And I was like, still feeling the way I felt the last two days. Plus, somehow hanging on with having taken like 300 units of insulin in the last 24 hours. And then faced with this, and I was like, oh my god, like I just want. There's all that plus, now, I'm also going to get in trouble. And I was like, screw this. And just so I go into the medicine cabinet, my sister. I know, you're gonna want to ask questions about this, my sister has rheumatoid arthritis since she was like nine years old. So there's more autoimmune stuff in the family. She has these giant boxes of paracetamol like big tubs that you can't buy, normally over the counter, because they just won't sell you that many. I just take one of the tubs and I go into my room, and then I hear the front door open. So I stashed it in a drawer. And I'm like, okay, I can take care of that. Now, I can't take care of killing myself. Now I've got to do it later. And I go downstairs, and my mom is there. And she's like, looking at me, you know, and there's there's no one else at home at this point. I don't know where everyone was. But it's just the two of us sit down in the kitchen. And she just wants to have the talk of like, you know, my teenage daughter is drinking. And now we're going to talk about the dangers of alcohol. But for me, it feels so much bigger, because it's piled on top of everything else, I feel like my life is over. And also, when considering the ways my parents would would say like your blood sugar is high. So like your granddad or we're taking your phone away that kind of stuff. I was like, Well, if that's what they do for a high blood sugar, what the hell are they gonna do for this? So I'm sitting there and my pump is beeping, because the insulin reservoir is low, right? Or is empty or whatever. And we're talking for a while. And she's like, so like, what are we going to do? And why did you do this? And then she's like, and why the hell is your pump beeping? We just changed the reservoir yesterday. And at this point, I'm like, oh, whatever, it's all out in the open, I might as well just tell her so a, like, I don't I don't have loads of other ways of explaining how else I got through 300 units of insulin in 24 hours. So I just, I launched into it.

Unknown Speaker 1:28:13
And

Síle 1:28:15
it's hard to remember what her reaction was. I mean, obviously, she was upset and I was upset. But it was I think she just was sort of like, okay, obviously, things are really hard for her right now. So we're not going to freak out about it. We're just going to try to I think she was like, I'm just going to try be bit more understanding with her. And I think she didn't say anything to my dad or to anyone else in the family at that point. But, you know, just kind of had dinner went to bed. That's fine.

Scott Benner 1:28:56
And was it just a big relief to tell somebody?

Síle 1:29:01
I think so. Because I think I mean, you hear this so often about a lot of suicide attempts being these kind of cries for help. And I do I mean, that was what it was. And even if the cry for help was to the people who were also making me feel bad. It was like a, you know, cry for help in the sense of look at what you're doing, like look at what your actions like look at the pain your actions are causing me. And yeah, it was kind of like okay, well, maybe. Maybe we might take this seriously. And so the next morning she comes in and she's like she's like, so I called the hospital and God I'm really struggling to remember like orders of events now that she was like, I called the hospital and we're gonna we're gonna go in and see Yeah, the girls like, that's what we used to call the, like, the diabetes nurses switch the girls. It's like, we're gonna go in and see the girls later. And you know, I can stay home from school. And, as I mentioned, previously, we were, we were in charge of cleaning our own rooms, which meant that my room was never tidy. It was constantly looked like a, I don't know, just explosion. So she's like, What if you know, until then what if we just like go through your we're just going to pick up your clothes and tidy stuff put stuff away? I think she, at the time, it didn't seem. It didn't seem weird to me. But thank you back now. I'm like, I think she wanted to go through and see what else was there. Yeah. And at one point, she opens this drawer and she finds this handful of paracetamol that I had just stuffed in a drawer, the previous evening that I had totally forgotten about. Because so much other stuff that happened. And I think that's when she kind of flipped because she was like, she was like insulin is something that she understands. And Sheila knows that, you know, and she obviously ate the sugar and she didn't die and she's still here and like it all worked out. Whereas the paracetamol she was like what she said to me after and I don't know if this is true about paracetamol. I've never looked into it. I feel like maybe she was confusing it with better drugs. But she was like the problem with you know, taking overdosing on paracetamol is that at first you feel really, you feel like everything's better and you feel really good. And then you get really, really violently ill. In hindsight, I feel like maybe paracetamol is not a good enough drug to make you feel really good ever. But that's what she said to me, the 14 year old at the time. And she did she seemed really scared by that because it was something that I think she wasn't expecting. And she, she also she seemed angry, or like, it was like before that she wasn't so angry. But then it felt like she was she sort of thought I was like just doing it to mess with her or to you know, it didn't feel like it was about me anymore. It felt like it was something I was doing to her. Which was never, like if I wasn't doing this for fun, I wasn't doing this. Just because I was like, you know, what will be hilarious is to mess with people by trying to kill myself. It was like, no one will listen to me. And I need to find a way of either making them listen to me or else just escaping all of it. So for me, it was like deeply I mean, deeply selfish, you know, deeply only concerning myself. But for her it, she sort of she started acting like it was this targeted attack on her. And I was like, come on, lady. That's not don't make this about yourself, even though I mean, I realized everything I'm saying is kind of contradicting itself, because I'm saying I was doing it because I wanted to affect them. But that was because of the pain I was in not because I just wanted to cause them pain. So anyway, we got to the hospital. They checked me in they are basically like we don't trust you to be at home right now. And I start to see this very nice, calming, psychologist. We go through events, all that stuff. And I think all I can. All I can remember is that I think that must have been the Tuesday. Yeah, it was the Tuesday I was admitted to hospital. And when we got to the Friday, I was like, please don't discharge me. I don't want to go home. Because if I went home it meant I would have to like face, my parents and face like, I just I knew they were so angry at me. Because to them, it was like, I wasn't doing this because I was in pain. I was just doing this because I wanted to be a little shit and cause problems for them. Which is not like it's not an amazing way to be received. And I think when my parents I don't know, I you know, I don't know what was communicated between doctors and parents or whatever. But I think when my parents realized that I wasn't coming home that weekend, they were like okay, well we have to tell her sister something. So before that it was just she lives in hospice. Little for her diabetes, which, to be honest, was not a rare occurrence. For me, it happened probably once a year, where the doctors were just like, we don't understand how your agency is so bad coming into the hospital, so we can just observe you for a while. So I think by the Friday, my parents were like, Okay, we have to tell them something. And again, I don't know, if the doctors told them, I didn't want to come home, or if they just said they weren't discharging me. But my parents were sort of like, had the attitude of, you know, again, she's just doing this to make our lives more difficult. Like, you know, it's pretty expensive hotel. Not that it costs. I mean, in Ireland, healthcare is free, like they weren't, you know, paying this, but you still get a bill. It's just, it's paid by the state. So I'm released on the Monday morning. And we are told that we're going to start like group therapy group counseling as a family, which I think is a great idea, because obviously, there's something not working there. But I think and this comes back to our fun, Catholic repression, my parents took it as now people are going to know that we're not like, you know, the perfect happy Catholic family. As the Catholicism doesn't come into it, they never would have thought Catholic family. But, you know, that's,

I think that's,

they were like, you know, we don't want people to know our business, like, we're a family, this should be between family. And also the idea that they had, you know, this group therapy wasn't just to enable us to talk as a family. It was also the fact that a child had tried to kill herself. So obviously, I guess in the US social services would be called, but in Ireland, honestly, I don't know what the structure is like, because it's not something I've engaged with a lot. But basically, just to keep an eye on things to see what was going on. And we had these very nice, these two very nice ladies would come to our house, I think, once a week. And the whole family would sit down, and we'd all talk. And I mean, I think there was a lot of anger there. From my part, I got to hear from my sisters, how they felt stuff like that, they felt that I got more attention than them because I was the problem child or whatever. stuff from my parents about like me, not looking after myself and stuff like that. So it definitely helped get things out in the open the way they should be. I'm a I'm a huge proponent of therapy, I think everyone should do therapy, no matter what their life circumstances are. Even if it's not all the time, I think at some point in their life, everyone needs therapy. And I had, I had been seeing psychologists since I was a little kid like when you're diagnosed. In Ireland, they they organise like annual visits with the psychologist just to check that you're developing normally, and all that stuff. So those obviously those visits increased after this. They asked if they needed to take away my insulin pump, but I think they kind of were like this. I don't, I don't, I don't think the insulin pump is the danger in this scenario. You know, I think she's a resourceful child. And she, if she wants to do something, she'll do it. I kept the insulin pump until Yeah, till I was 17 or 18. And things changed. The family dynamic changed. We didn't have more of those episodes, like the picking on are not even picking on but like trying to get a rise out of me because I was easy to get a rise out of. But what I did notice was that it shifted to instead of doing that to my mom, so instead of going to a nice restaurant and sitting down as a family, instead of the dinner ending with one of the kids, you know, to an outsider, one of the kids throwing a tantrum and running off in tears. It would end with my mom dissolving into tears. And I was like, wow, our family is so wrapped up. And I don't think our family is, you know, outside of the ordinary. I think every family has their problems are, you know, especially around communication. But you know, I don't think we're special in this, but I just was like, Oh, wow, we obviously have some like thing here we need to work on. If we have this, like, weird need to make someone cry at every meal. beyond just having that observation,

Scott Benner 1:40:22
yeah, beyond just like, what the way it was described to you, which is just like, Oh, I'm just trying to get a rise out of your I'm just kidding or something. It just kept going and going and going until somebody broke.

Síle 1:40:34
Yeah. And it's like, it's like, I don't care if you're just trying to get a rise out of me. Like, why is that something that's fun for

Unknown Speaker 1:40:40
you? Yeah. No, I didn't want to do

Síle 1:40:43
Yeah, no, no, I know. It's just like, why is that something that you as like, a normal, nice, fun loving person? Like, why is that? Your way of expressing that? So yeah, I think I don't I feel like the others probably noticed that as well, that it was like, oh, wait a second. Suddenly, all of our meals are ending in tears, but it's a different member of the family. Maybe we need to address this, but I guess. Yeah, I mean, slowly over time. We got better. We don't. We don't talk about that time. And it kind of, like for several years was not talked about. Except, like, there was one time, there was one time my mom brought it up in an argument. But she had totally like rewritten events in her mind. So that instead of me running out of the house, because I was upset with them. It was because I was upset with something one of my friends had said, and she was like, Oh, I don't want you hanging out with those friends anymore. Because like, they upset you so much. Last time, I was like, What are you talking about? And I understand being in denial about that kind of thing. And especially being part of the reason, I totally understand not being able to deal with that as a concept. But yeah, it was very much just like, we don't talk about this. And when we do talk about it, it's totally warped. What's crazy, so yeah, totally crazy. But yeah, I mean, I continued, like, even after that, I continued, like very much, not wanting to be a life. Like I just everything was too hard. diabetes was too hard. I've, you know, felt bad all the time. But I also like, after this, I don't know didn't have the courage, which feels like a weird way to phrase it. But you know, I wasn't brave enough to like, actually do anything about it. You know?

Scott Benner 1:43:07
Like, how long have you feel like you wanted to?

Síle 1:43:11
Oh, God, like, probably 10 years after your early 20s. Yeah, in a in a sort of way that I was like, I'm not going to do anything about this. But if, like, if God struck me down in the night, I would be happy about it.

Scott Benner 1:43:28
When did you move out of your parents house? How old were you then?

Unknown Speaker 1:43:32
Oh, about that age.

Síle 1:43:34
Yeah. I live. I lived on campus for my last year of college. And it was better, but I think the mixture of final year pressure and still, like still very much, you know, I'd still go home for the weekends. I was still in Dublin. I was still you know, it's still in that environment was not an amazing year, mental health wise or physical health wise. And once I finished once I graduated, I moved home for about six months where I was working. I was working with my dad. So in the company he worked for. And I was also still working in the bar that I had been working working in in college. So I was working two jobs and living at home with my parents and it was just hell. And I started seeing I remember seeing my, my Endo. And he was like, I think before he even spoke, I was like, Hey, I know my numbers are really bad, but I just I don't have it in me to care about it. You know, I don't I don't have the strength to look after myself because I don't care enough about myself to do that. And he was just like, Okay, we'll make you an appointment with a psychologist. Which was, you know, he was like, there's no point giving you advice about insulin right now when that's Obviously not the problem. So I see the psychologist and I'm seeing her for a while and I finished my my contract. My dad's company, I go off and get my first real big girl job. And a few weeks later, I move out into a tiny, teeny tiny apartment with a bedroom the size of a single bed with like, maybe a foot between the bed and a wall, so you could get and about a month later, my psychologist, yeah, about a month after I move out, the psychologist is like, you know, I think our work here is done. You seem fine now.

Unknown Speaker 1:45:43
So it's,

Síle 1:45:46
it's definitely a thing. And it's not that, you know, I don't I don't hate my parents or even dislike my parents. And like I said, we get along great, but it was not. It just wasn't an environment that I could be in at that time.

Scott Benner 1:46:00
So are they different parentally than they are? Like when you think of them? Like if I just asked you to describe your parents as people. How would you think of them? Oh, um, are you okay? By the way, your breathing? Yeah,

Síle 1:46:18
I'm okay. Yeah, I'm, I'm having a good cry here.

Scott Benner 1:46:22
Expect this when you asked to come on? Oh, yeah. I

Síle 1:46:25
knew I was gonna cry.

Scott Benner 1:46:26
Okay, all right. Okay, oh, it's okay. Yeah, but if you don't mind, like, can you describe them as people like trying to forget about your parental child relationship?

Síle 1:46:37
Yeah. Um, so my mom is like, very chatty. And she's really involved in, like, social stuff. And she loves, she loves organizing stuff. She loves you know? Kind of like no, no. She's like, very good at organizing other people and very bad at organizing herself. So like, sort of person who she can, like, go into a room and like, rearrange it and I don't know, do amazing stuff. But then you look at her office and it's like, just stacks of papers and empty boxes and like Christmas decorations. And, you know, so I don't know. She's like, she's a little bit scatterbrained. But also, very I don't know she's, she's got this like you. She's got all this spatial awareness and logic e brain mathematicae type stuff. But then got this sort of like crazy.

What's that, like crazy

scientist kind of stuff going on where like, everything around her is a mess. But the things she's working on is perfect types of, but very outgoing, bubbly, social. Friendly, whatever. My dad

Scott Benner 1:48:03
was. Let me ask you about your mom. Was she one of the people who picked on you with the restaurants?

Unknown Speaker 1:48:09
I would say less so.

Scott Benner 1:48:11
Okay.

Síle 1:48:13
But at the same time?

Scott Benner 1:48:17
She didn't stop doing it either. Right?

Síle 1:48:20
Yeah. And also like, she was probably the person closest to my diabetes care. And that that aspect of like, me feeling bad about like, having high numbers and whatever. Yeah. So it kind of yeah, she's also definitely much more like, she cares what other people think. So like, if I was going out of the house wearing something she didn't like, she'd be worried about what the neighbors would think of her because her child looks like that, or that kind of thing. So she would definitely put that on me. Like, she'd be like, you know, why did you do this? What are people gonna think of me? And I was like, I don't know what people are gonna think of you. It's my life. Like, do you

Scott Benner 1:49:09
think I thought you look bad? Or do you think she worried about what people would think? Because I see those two different things.

Síle 1:49:18
Like, I mean, I don't think she thought I looked good.

Scott Benner 1:49:21
But was she judging you? Like, if there was no one else in the world would she have looked and said, I'm not comfortable with what you're wearing? Where was it? I

Síle 1:49:29
think it was, it was definitely more about other people. Outside people. Okay. Yeah. Yeah, I mean, I

Scott Benner 1:49:37
yeah, I wonder why she cared.

Síle 1:49:41
I think again, it's just like, to me that feels very Irish. It feels very like small town. Everyone is going to talk about everyone. Which all of Ireland is Ireland. It's just all small towns like there's no big, no big towns, even Dublin. Like what is the capital city It's only a million people. Yeah,

Scott Benner 1:50:04
yeah. It's something about how she grew up. Is that Yeah, got her head about that, then. Yeah. So now describe your dad as a person.

Síle 1:50:14
My dad, I think, to his friends would seem like, laid back. Funny.

Unknown Speaker 1:50:25
He likes,

Síle 1:50:27
He likes kind of leisure stuff. He likes playing golf and sailing and going for walks, and you know, taking it easy. And he got a rotary saw, and he likes to do stuff with, I don't know, trees and stuff. Now. He's retired now since about two years. So he's like, he's like, I'm gonna take up a hobby, and let's start carpentry? And I don't know, he just he likes to

enjoy life. And

Scott Benner 1:50:59
but he was the one that would take the piss out of you. Right?

Síle 1:51:02
Yeah. And he also,

like, grew up.

He's a very smart man. He grew up working very hard. But he also was kind of came out of university, you know, worked as an engineer, a chemical engineer for a few years. And then someone basically headhunted him to run a company. And that's where he stayed for the next like, 40 years in his career. So he was sort of like, I worked really hard in my life. And that's where it got me and he is a little bit, one of those people who is like, I don't know what these people are all complaining about. If they just knuckle down and got a job, they'd have a house and a nice garden and a boat. And,

Scott Benner 1:51:48
you know, we have an engineer. Is he a little not socially a little socially awkward.

Síle 1:51:55
But we know it's we're all everyone in the family has the engineers brain, like we're all problem solve the logic, geeky type people

Scott Benner 1:52:04
think? I think he was trying to toughen you up because of the diabetes. Like, if you ever thought like, I mean, obviously not the right thing to do not saying that. I'm wondering like, what was his because you're not describing a mean person?

Síle 1:52:19
Yeah, no, it's I mean, this is obviously my perspective. Now, as I know them differently. I think if you'd asked me 15 years ago to describe them. I would have said like, my mom is a nosy Busybody who's always telling me what to do. And she's so annoying. But it I think, honestly, I think for the family, it was just that. It was it was funny. They were like, Oh, look, if I if I push this button, she's going to explode. And Haha, I think they weren't thinking about it. Like, oh, this actually affects a person

Scott Benner 1:52:57
or you like them. I let me tell you why I'm asking. I'll never forget in second grade, second grade, I had a teacher Her name was Mrs. Nelson. And she and I hated each other. And, I mean, imagine how old I was in second grade. I mean, I don't know how old that is. Hold on a second. Now you're gonna make me think five and kindergarten. I was seven. Okay, okay. I'm seven. She's a grown ass lady. Okay. And we went at each other, like, I don't know, like, like, we were Russia in the US during the Cold War. Like, like, every day, we beat the hell out of each other. Like it just back and forth, and back and forth. And I will never forget that on the last day of school. She took me out in the hall, I spent a lot of time in the hall. So she put me in the hall on the last day of school when everybody was having a party and having fun. I just sanded off for seven and a half hours by myself. Oh my god. She's just she just seems just gonna get me one more time. Right? I think these days they call that child abuse. Oh, trust me, look at me, made me almost tough. And so at the end of the day, she comes out and she says something to the effect of in the end, Scott, you and I were just too much alike. And I was like, Yeah, I see that. And then I went in the room grabbed up my stuff looked at everybody who I would never see again probably all summer felt like forever. And I left and and I'll never forget her saying that. Like I really I do think there was something to that, like we were so similar, that we just just attacked each other constantly. And I don't know why that happens.

Síle 1:54:49
I would say I'm I'm similar to both my parents like there's definitely aspects of both of them that I embody or whatever

Scott Benner 1:55:00
Also, by the way, I don't think you should treat a seven year old like that she obviously had the Oh, absolutely. By the way, if she was still alive, which she's not, she's got to be dead forever. But if she was alive now,

Síle 1:55:10
I love it. You know that? Oh, well, I

Scott Benner 1:55:11
mean, she was she had to be in her late 50s then. I mean, that was 43 years ago. She's not alive. Now. She's on She's no Bruce Springsteen. And, and so I just want to tell her her her dead self. I could, I could have got the best of you as an adult. If we would have been a fair fight, and I was heard her 50s that made her 50s I could have drove her out of her mind if I wanted to. But at a seven year, as the seven year old, I was limited

Síle 1:55:38
still. Yeah, no. Yeah. But also Yeah, it's like you were seven. What were you supposed to do? She was a grown woman.

Scott Benner 1:55:45
It's a ridiculous story that absolutely is true that I just kind of remembered because of your conversation, honestly. And I was like, wow, they're just torturing each other.

Síle 1:55:56
Yeah, I mean, I had teachers over the years who, you know, were extra hard on me because they wanted to get the you know, they thought I was the class was too easy for me. I was taking it I was resting on my laurels and they wanted to push me so I would get better results. I had teachers we had sort of like we do these like fake exams before our real exams to prepare and you send them out for to like external examiner's from other schools to who mark them because they don't know you. So they can't you know, there's no favoritism or whatever. I had teachers who marked down my independent examiner's because they were like, no, no, no, we I don't want you slacking before the exam. So I had teachers who were super hard on me, but I never felt like they were picking on me. I just felt like, you know, I understand what this is. They're clear in what they're doing. I need to keep up the hard work. Whatever. I don't think that's what this was. Your dad was just yeah, there's Yeah, this felt like you know, she's the she's the the clown today that we're gonna pick on and laugh at. And

Scott Benner 1:57:03
that's well that's up is what that is.

Síle 1:57:08
But I mean, in the end everyone I think learned a lesson of compassion and empathy and whatever.

Scott Benner 1:57:14
on your on your ass. They learned it but yeah, I guess. And did you in so now as an adult, like almost 30 years old, day to day? How often do you think about this? Not? It seems like you struggled to remember the story a little bit. So

Síle 1:57:32
yeah, I would say I don't think about it. Like, I think the only time that I've thought about it in the last year are when I thought about the podcasts like when I felt like oh god, what if Scott asks me this? Or I

Scott Benner 1:57:53
wrote it down. She'll I would have never been. You could have you could have just been the fun girl with the accent who lived in Germany. But no,

Síle 1:58:01
no, but it's like, like a few nights ago. I think on what day? Is it? Tuesday? Monday? Yes. Okay. Yeah, a few nights ago. Maybe it was last night? I don't know. I was like, oh, that's soon. And then of course, I couldn't go to sleep because I was like, what if you know, what things do I need to remember? What do I need to say? What if I forget to say this? Like, those are the only times I thought about this in the last year?

Scott Benner 1:58:28
Okay, so Alright. Well, that's I mean, that I'm trying to give good news to the people who are listening. Yeah, you're not tortured by it. You live? Would you consider that you live a fairly normal life now?

Síle 1:58:40
Yeah, totally. I mean, asides from the it's kind of a joke. Now when I meet new people, that I'm like, oh, excuse me, like I'm a little bit blind or like, Oh, I forgot my reading glasses or, Oh, no, I can't take you ibuprofen because of my kidney disease. And oh, I just have to do my vitamin B 12 shot because I have Pernicious anemia. Because of my I was I was diagnosed last year by my endo with poly glandular autoimmune disease. which basically just means you have a bunch of autoimmune diseases. I have Hashimotos as well. And yeah, they they monitor me for all the stuff Addison's and stuff like that. So I think technically once you have three, so Pernicious anemia, Hashimotos and the type one diabetes, um, technically, poly glandular autoimmune disease, which is classified as a rare disease,

Scott Benner 1:59:41
a rare and complex recessively inherited disorder of immune cell dysfunction with Matobo auto immunities. I think that what I just heard was we all got to stop getting Irish ladies pregnant for a couple of decades to try to get rid of these autoimmune diseases.

Síle 1:59:54
It's too late. There's more Irish people outside Ireland than there is in Ireland. Like we're just Yeah, we've been emigrating for too long. We're everywhere. We're among all of you.

Scott Benner 2:00:05
All of you. Like your aliens you like, we're, we're even in your government.

Unknown Speaker 2:00:12
You can't find us.

Scott Benner 2:00:15
That was funny. Oh my god,

Síle 2:00:17
I think I think it's too late for that. I mean, like, yeah, like I said, my, my eldest sister has arthritis. My other sister doesn't have anything wrong with her. And I think she's also the child. But she's the middle child. And she has that like, middle child syndrome of you know, that plus, while the other two have things wrong with them, and they go to the doctor all the time, and I don't have anything wrong with me, and no doctors would have seen me.

Scott Benner 2:00:48
So what I'm telling you, everybody thinks everything's better all the time. Well, yeah, well, this episode is, it's gonna do great things for the people who say that I talked too much, because I really didn't talk very much at all. And

Síle 2:01:00
there were times when I was talking. And I was like, I was like, Am I still online? Did I disconnect? You were

Scott Benner 2:01:07
telling some deepest story I wasn't getting involved in I wanted to hear what you were gonna say. I don't even actually good.

Síle 2:01:14
I just thought, when I was saying, I never think about my, my juvenile suicide attempt. It's actually another thing that causes me to think about it is when I see parents worrying about their kids. And I'm kind of like, you know, guys, I've been through it. I'm still here. It'll be okay. Oh, I

Scott Benner 2:01:35
thought you were gonna say I wish someone would have worried about me.

Síle 2:01:39
No, I mean, I mean, people were worried about me, they just didn't express it in the best way, I guess. But um, no. I mean, when I see people kind of saying, like, you know, my, my kid is sneaking food, or my kid doesn't care about his diabetes, or my kid, whatever. I'm like, I feel like you need to zero in on the mental health here. And once those problems are better, everything else will follow. Sure. But it's like the first thing to because I mean, regular people, when they're depressed, they find it hard to shower and brush their teeth. And I was when I'm talking to people about this. I'm like, shower and brush my teeth. Like I can't even do my insulin I like what do you

Scott Benner 2:02:24
do you think, though you do you think you have depression because of diabetes? Or do you think it's something you would have had without diabetes?

Síle 2:02:32
I don't know if there is much point in speculating on that, because there's no way to know. But I also at the same time think it's the cause of diabetes. But that's only because the two are so linked, like so many people with type one, are also depressed. So I think if you ask me from like a scientific point of view, I would say probably yes,

Scott Benner 2:03:04
I feel as a non scientist, and as a person who spent the entire last day of second grade in the Hall of inflammation has something to do with depression.

Síle 2:03:14
Oh, that's Yeah,

Scott Benner 2:03:15
I think I think the inflammation is. It's a lot of a lot. So

Síle 2:03:20
yeah, I mean, and also just this idea of isolation of like, no one around me knows what I'm going through, I think it it's like when you put the two things together, it's like the magic recipe for being super depressed. So I also have extreme anxiety. Like, I've been shaking the whole time, we're on the call. And I'm just talking normally, but I'm, like, very shaky. My heart rate is 100. Right now,

Scott Benner 2:03:46
do you think how do you think this conversation will impact the rest of your day? Because it's 630? Where you are right? In the afternoon? Yes. Yeah. It's all in the afternoon in the evening, the evening, it's 1230 here. Well, I

Síle 2:03:55
mean, it's been dark for like three hours already.

Scott Benner 2:03:58
Like, do you think you'll just like get down and be like, Alright, I'm okay. Or do you think that this will weigh on you for a while? Or how do you think sharing this? Is it been good for you? Or is it upsetting?

Síle 2:04:10
No, it's good. I mean, after I do anything, even after just like a morning of, if I have like two meetings in a row, I need to like sit down for a while, you know, so I'll probably just like, drink a cup of tea and

go for a walk, take my dog outside. And I think tonight we're making Chinese hot but for dinner. So we're gonna go to the Asian market.

Scott Benner 2:04:37
That is lovely. That's gonna be it. My wife just did a five day fast. Oh, she last night, laid out the entirety of what she's going to eat today. She's like, for breakfast. I'm going to have this at lunch. I'm gonna have a say she's like, I'm gonna have a tuna sandwich at lunch with a tomato. And she talked about it like it was heaven and sex and money. He wrapped all in one. She was just, she's just like, it's going to be wonderful. And I was like, Okay,

Síle 2:05:06
I believe you. I mean, I spent Christmas in France, because I mean, with the vitrectomy that I had in November, I wasn't able to, I'm not gonna explain why, because if you Google it, you'll know why I wasn't able to fly afterwards. And to get to Ireland from Germany, you need to fly. Otherwise, it's like a 50 hour drive plus a ferry, plus more driving, so And also, I can't drive so that all those things. So instead, we took the train me and my boyfriend who was French, and my dog, we took the train to his family for Christmas, in France. And for the like, four months before we went, we just talked about all the food we were going to eat. And it's not like you can't get French food and other places. And we have this amazing cheese shop here. Run by French people, where we get all their cheese. So it's even like we couldn't get it. We were just like, it's just, it's gonna be so good. She

Scott Benner 2:06:06
said different slice of tomato. Like she said, we're going to get into a time machine and go back to when we were young. Like she was just like, so taken by the whole thing. Well,

Síle 2:06:19
I'm happy for her. That makes me happy.

Scott Benner 2:06:21
Oh my god, she's gonna have the best tuna sandwich in the world today.

Síle 2:06:25
But you know what I mean? It's like, it's cool to like things. I'm happy that she was so happy about that. Oh,

Scott Benner 2:06:29
it's the it's the fast. She's just Yeah, yeah, she's definitely was a five day fast.

Síle 2:06:36
So honestly, if fasting makes you even happier to eat food, maybe it's worth it.

Scott Benner 2:06:41
There are some people that fast once a month. I don't know if I'm that person. But I for health purposes. So yeah, I think they do it. Because they think it's good for their vitality somehow.

Síle 2:06:53
Okay, it's just once a month seems,

Scott Benner 2:06:56
I think, I don't know, it seems frequent. But maybe I think the intermittent fasting allows your body to do the other things. Like almost Yeah, you don't I mean, like it gives it a chance to like do the digestion do this kind of stuff, like work on other things, because you're not constantly asking it to digest food.

Síle 2:07:14
Yes. And I think I mean, I think with

Unknown Speaker 2:07:18
with

Síle 2:07:20
when you have a CGM, I think you've see that I think you're, you when you're on like a level flatline, you're like, Okay, here we go time for normal life when I'm not constantly, even even just on a metaphorical level, like where I'm not constantly monitoring my blood sugar to make sure it doesn't go below a book belove above this level, or below this level. It's like, Oh, I haven't eaten in five hours. And I'm, you know, on a flatline, and nothing's happening, and I can concentrate on the other things in my life without worrying about everything else. Like that's what your body's doing.

Scott Benner 2:07:54
I'm not certain, but this might be the longest episode I've ever recorded.

Síle 2:07:58
I was just thinking it's been a very long time. Now,

Scott Benner 2:08:01
how about that? I actually just got a message. A person, a new review has been sent to the podcast, and it is not good. It's so it's so like, just now I'm like, What is this? And I clicked and like, oh, goodness, and didn't say you talk too much. So this is a person who never heard the podcast before. They Googled a term wanted to learn more about it. They don't have diabetes, nor does anyone else in their family. And they really don't like me. Do you want me to? Do you want to hear? Yes. I don't know if I've ever done this before, because this makes me I feel like I don't care. And I feel uncomfortable at the same time.

Síle 2:08:45
I know what you mean, hold on a second.

Scott Benner 2:08:48
Because honestly, I know what the podcast does for people. It's okay if one person Oh, yeah, you know, misunderstood me and this person definitely misunderstands me. Oh, it sounds so harsh. I searched out glycemic index on podcast on podcasts in an effort to educate myself. First of all, I mean, get a hobby, but let me say I'm not diabetic nor thankfully aren't any of my family. I do however, like to be informed. Okay, you're great. I get the setup. Let's get the kick in the ass now where I'm not great, Rachel. Here we go. I have to say that I found Scott irritating and very self centered. As he spoke over Jenny, you misspelled Jenny. While she was trying to port Jenny tried to make a point I spoke over top of her. And this person is from Great Britain. By the way. I don't know if that has anything to do with that

Síle 2:09:39
makes sense. It makes sense that they're obnoxious. I didn't think I don't know if he I don't know if you don't know that Irish people have a thing about English people

Scott Benner 2:09:48
don't but I'm glad I'm saying this in front of you.

Síle 2:09:52
They occupied our country for 800 years and caused a genocide and all this kind of stuff. Sorry, I'm sorry. I don't hate all English people. It's just like when we're When we're talking about generalizing, I'm like, you know.

Scott Benner 2:10:02
So now now the next sentence is going to indicate how Ashley completely. I'm so sorry I said she, it could be a guy. I don't know by the name that there's no like they didn't leave their real name, which by the way, both of you not to leave your real name while you're trashing me. Furthermore, he seemed to boast how when wearing a glucose monitor, he couldn't get his sugar to spike, even though he gorged himself eating two slices of cake. Now see, that's a complete misunderstanding of that, like I was talking about how a person with type one will fight with the glycemic index and glycemic load of foods because they don't have any insulin to resist them. Whereas a person like myself who doesn't have diabetes was literally had to gorge myself to get myself up to like 160 blood sugar. I wasn't I wasn't, she wasn't

Síle 2:10:58
believe you would boast like that about how good your pancreas

Scott Benner 2:11:01
my pancreas works so good. You guys shouldn't be jealous. Like like this. This is an obvious like misunderstanding of the context of the conversation plus probably of sarcasm because I guarantee I made some stupid joke in there like that. Right?

Síle 2:11:14
And probably just the whole concept of the podcast itself.

Scott Benner 2:11:18
She left the podcast early and won't be back again to listen. Which Oh, yeah, I, I so thought she was going to try one more episode. And, again, could be a guy 45 minutes of my life, I will never get back. So

Síle 2:11:35
they are long episodes. Well. I say after two hours,

Scott Benner 2:11:42
you might want to shut up. But so like, but, but I loved it. Somebody listened to something that has 830 episodes, and 11 105 star reviews. And after 45 minutes thought they were like, Oh, I know the real thing that's going on here. I'm fascinated by

Síle 2:11:58
Well, yeah, because they like to be informed so well. And they came to this with an open mind. And they have

Scott Benner 2:12:03
to take the time to tell someone else about it. Yeah, yeah. You other.

Síle 2:12:08
I've never reviewed the podcast, but I think after this, I'll go and I'll do it.

Scott Benner 2:12:13
Well, I need a couple of people now to push hers down a little bit to get it you know, what's gonna happen is like, I'm gonna get a new advertising to go let me go check out the reviews of this thing before I decide if I want to advertise on this podcast or not. And it'll be this blast. She really didn't like it. She had a bad time. By the way, she still I'm gonna

Síle 2:12:31
I'm gonna go on and be like, I love how long the podcast episodes are. They really allow me to experience the depth of detail and everyone's stories. Would you

Scott Benner 2:12:40
consider writing a review that said, I searched out glycemic index on podcast and in Africa did you make myself let me say I am a diabetic. And there are people in my family who have autoimmune diseases. And I love to be informed. I have to say that I found Scott amazing. And it was wonderful how he and Jenny went back and forth on the topic.

Síle 2:13:01
In verse every sentence that's in there,

Scott Benner 2:13:04
put it right next in this one. Furthermore, I loved how we joked about his pancreas stopping the cake, and blah. Yeah.

Síle 2:13:13
I love to hear about cake and pancreas.

Scott Benner 2:13:18
Do you know what a glutton I am for? For conversations like that? I'd love to talk to this person. Absolutely, I would. I would talk to them forever about this. So interesting.

Síle 2:13:29
I mean, what I what I will, honestly, I will go on and I will write that review. What I would have written if it weren't for this person is about how I never heard of, like all this open source close looping community stuff before. I mean, before the episodes. Yeah, I guess I remember I started on Episode One. And I went chronologically through so Wow. It's like in the two hundreds or something where we first encounter looping or the concept so and I just started looping. Probably close the loop two months ago, good for you. And in Germany, we have the we have the Libra three for like, year and a half here now. So I'm on that and I have my own mi pod and I'm like the the wireless woman and and yeah, I mean, honestly the whole thing. I just, it's like even on a bad day. I still don't have high blood sugar even on the days where I don't Pre-Bolus I eat food and I don't carb count correctly. I still don't have bad blood sugar and

Scott Benner 2:14:38
I'm horrible person and that review helped you get to that.

Síle 2:14:41
Yeah. Yeah, no, it's like I never would have known about any of that. If if I didn't listen to the

Scott Benner 2:14:49
pop up. If I'd stopped talking over Jenny so much, you would have been able to figure it out earlier.

Síle 2:14:54
Like 150 episodes earlier. I don't even think Jenny was in the picture. Back then. She

Scott Benner 2:14:59
wasn't chatting had been On the show one time and the first caller,

Síle 2:15:03
because I kept seeing the posts about like Scott and Jenny and I was like, is that that Jenny who was on one time because I don't, I don't understand what's happening.

Scott Benner 2:15:10
Why would this? Why would this be the person? Well, anyway I listened to anyway, this person is well, you know, welcome to their opinion.

Síle 2:15:19
And that's absolutely fine. And I'm gonna go on and mock them mercilessly. Now,

Scott Benner 2:15:24
please leave, I would pray if you're gonna take the time to leave a review, leave your review of the podcast because only you and I only you and I will understand that everyone else will be like, plus, you're gonna go through the German podcast app, and she went to the UK podcast that I don't know how any of this works. Yeah, so So joke's on her. Nobody's really gonna say it because she lives in the UK. It's a tiny little place where hardly anybody is. And I don't know how many people live in the UK. Don't start bad mouthing them again, by the way.

Did you Did I lose you, Sheila? Hello. I know. You can hear me. What a great way to end the show. Alright, thanks a lot, everybody for coming. Two hours and 11 minutes. You're back.

Síle 2:16:20
I'm back. I don't know what the hell just happened. Sorry.

Scott Benner 2:16:23
There's 67 million people in the UK.

Síle 2:16:27
That's too many.

Yeah, I don't know. It's Ireland. Only has 5 million pupils though.

Scott Benner 2:16:38
Well, you better raise up a bigger army if you're gonna go over there. And

Síle 2:16:41
I mean, people left Germany is way bigger. I don't know how many people there are in Germany. I don't

Scott Benner 2:16:45
want I don't want Germany raising up another army. I'm good with that.

Síle 2:16:49
Maybe not? Yeah,

Scott Benner 2:16:50
let's leave that word. Where it is.

Síle 2:16:53
I think we could get the Scottish on our side, though. I don't think the Scottish people like English people, probably about as much as Irish people like English people

Scott Benner 2:17:00
not believe how far down this rabbit hole you went.

Síle 2:17:06
I stand by I want

Scott Benner 2:17:08
to just say, I don't know anything about any of this. This is just the person talking who I've allowed to come on the podcast. And I love all the listeners in the UK. Except for this one lady who clearly doesn't. And I still like her to or him. But I come off really poorly thinking that was a woman who left that review.

Síle 2:17:23
I mean, I think sometimes you just have to pick a you know, in order to personify a review or you just have to pick

Scott Benner 2:17:33
trouble and project even a guy could care enough to leave a review about anything to be perfectly honest. You know,

Unknown Speaker 2:17:38
oh, I don't know. You think?

Scott Benner 2:17:42
I don't think men care about crap.

Síle 2:17:44
I know there's loads of I mean, men on the internet, especially someone who goes to the trouble of searching glycemic index on podcast. Could be

Unknown Speaker 2:17:53
could be either. You know, you

Scott Benner 2:17:55
mentioned something at the very beginning of this that I thought to say something and then I just I didn't want to cut you off. But you were talking about I forget what you were talking about. Nice. I was thinking that. Oh, you were talking about how I manage Arden's blood sugar's kind of matter of factly. And I thought at that point to say that there have been a number of times in my life where I have thought that being a stay at home dad was beneficial to my kids. Because of the matter of fact, way that I approach things. And I do wonder if in those very same circumstances if my my wife would have handled them differently. And I wonder how much impact that's had both for probably good and for bad? Because I wonder what I don't do that my wife would have done. And I wonder when that's been beneficial and what it hasn't been? So, but I didn't say that. Yes, you were

Síle 2:18:52
on a roll. So I'm sorry. I mean, what's worth saying?

Scott Benner 2:18:56
Your Chatty is, is all good. Yeah.

Síle 2:19:00
But it's, I mean, what what is also cool is as a stay at home, dad, I mean, you were able to dedicate time and energy to that kind of stuff, which I mean, both my parents worked. You know, I'm not surprised my mom wasn't micromanaging my insulin dosing from work while I was at school and all this. And also, I mean, yeah, it just wasn't. It's a different time. Yeah.

Scott Benner 2:19:29
Technology was different. And the ideas about managing diabetes were different. And the insulin was Yeah, and a lot was different. Yeah. So yeah, I can't I can't thank you enough for doing this. I really do appreciate you being so forthright with everything.

Síle 2:19:45
No, I mean, thank you for having me on. I mean, the thing is, I don't think that my experience or story or whatever is especially unique, especially the more that I hear from people who've lived with diabetes for a long time. So I mean, I Guess as time went on, I was like, do I actually have anything to say that's interesting here, but, um, I mean, we met a shock for a long time anyway,

Scott Benner 2:20:08
I think you said planning, I think it was very valuable. I do think that even if it is something that a lot of people go through hearing the steps and I mean, just imagine if this is the thing that happened to you and you're listening, just maybe hearing you say something about a realization you had about your parents or something that might be a realization that another person hasn't had yet and it might help them move forward. I also think it's incredibly valuable for them to hear that you are a successful stable adult. And you know, because that gives people I would think a lot of hope. Plus, you're a musician. So everybody has to aspire you know what I mean? You know, raise for the rest of your life becoming a space musician for me if you care to me about me at all.

Síle 2:20:57
I'd need to figure out go back to playing music, but I will endeavor

Scott Benner 2:21:03
now you won't stop it. Okay. Hold on one second for me. Sure, thank you.

Unknown Speaker 2:21:36
I believe that this nation should commit itself

Scott Benner 2:21:50
thanks so much to Sheila for coming on the show and for lending us this music for our altro today. I also want to thank touched by type one, and remind you to go to touched by type one.org and find out all about their programs and offerings. The podcast was also sponsored today by Dexcom. And of course if you use my link dexcom.com forward slash juice box you can learn all about the g7 hear from real users and get your free benefits check dexcom.com forward slash Juicebox Podcast The other thing, the other thing

if you're looking for community around your diabetes, check out Juicebox Podcast type one diabetes on Facebook. It's a private group with 40,000 members it's absolutely free. And there's something there for everyone type ones type twos, Lada parents of children with type one adults, everybody's represented. The conversations are amazing. Check it out Juicebox Podcast type one diabetes on Facebook. And if you're looking for the diabetes Pro Tip series that begins at Episode 210, but you can find all the series at juicebox podcast.com Right at the top in the menu, check them out