Scott Benner 7/22/22 Scott Benner 7/22/22

#723 Bold Beginnings: Long Acting Insulin

Scott Benner 7/20/22 Scott Benner 7/20/22

#722 Jesse Was Here Part II

Michelle has been a strong advocate in the “d” world since her son, Jesse, was diagnosed with Type 1 diabetes in 2000 at the age of 3. After the sudden loss of her son at the age of 13, she continues to advocate and educate.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 722 of the Juicebox Podcast.

Today's show features a returning guest. Michelle was on the show back in 2016. On episode 90 She was here at that time to discuss the loss of her son Jesse, in an episode called Jessie was here. A few years ago, Michelle wrote a book also called Jessie was here from the perspective of a grieving mother. And she's back today to catch up with us. Tell us about a new books you'll have coming out pretty soon and all the rest. While you're listening. Please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan, or becoming bold with insulin. If you have type one diabetes and are a US resident or are the caregiver of a type one, please go to T one D exchange.org. Forward slash juicebox. To take the survey, that's all you have to do. Join your registry take the survey takes fewer than 10 minutes you're helping people with type one diabetes, you're supporting the show, and you're possibly helping yourself. P one D exchange.org. Forward slash juicebox.

This episode of The Juicebox Podcast is sponsored by Dexcom, makers of the Dexcom G six continuous glucose monitor. Find out more about the Dexcom g six@dexcom.com. Forward slash juice box you may be eligible for a free 10 day trial of the Dexcom GS six. The episode is also sponsored today by Ian pen from Medtronic diabetes, head over to in pen today.com To learn more about that insulin pen that talks to that app that gives you a lot of the functionality that people with an insulin pump get all that from a pen. That's right in pen today.com

Michelle Bauer (Alswager) 2:11
I am Michelle Bower formerly Michelle all swagger and I am Jessie all swaggers mom.

Scott Benner 2:18
Do you remember what episode number you were on the first time because I can look?

Michelle Bauer (Alswager) 2:22
Oh my gosh, it was it. 31 or 71? I know I looked when I read listened to it recently.

Scott Benner 2:28
I'm gonna find out right now. I have access to this as you would hope. You were episode 99. December 13 2016. I put that up.

Michelle Bauer (Alswager) 2:43

So not that long ago? Well, no, I guess that is six years ago. Lots have changed in 66 years.

Scott Benner 2:52
What has changed?

Michelle Bauer (Alswager) 2:54
Well, I think the last time I talked to you I was working at right was my writing. Yeah, writing on insulin. So I was helping with the ski, snowboard Mount Bike camps all over the world. And I wanted to stay in diabetes and David Edelman, who you may or may not know whose CEO, he was CEO of diabetes daily, kind of took me under his wing and said, Hey, do you want to sell the advertising on our website was like, Yeah, sure. So I've been there for four years, still working in diabetes. But we sold diabetes daily, actually, to everyday health. And so now we're just drivable, which is fully market research. So we do all the market research for all the big med tech tech, you know, to see what's coming down the pipeline. That's interesting.

Scott Benner 3:36
I met David, I've met David a couple of times, actually. And he's, that's such an interesting story, right? Because didn't he start diabetes daily with his wife who was type one? He did a divorce, and he kept the website going, is that do I have that story? Right?

Michelle Bauer (Alswager) 3:54
You haven't absolutely right. I believe it was 2005 when he just wanted to put a community together. And then, you know, years later, you know, he's remarried. He's on child number three with his wife, Carrie. And this company has grown like by leaps and bounds since I started. So what I thought was going to be, you know, working with all the Abbott's and tandems of the world selling advertising now I'm working with them on market research.

Scott Benner 4:20
Oh, that's pretty interesting. No kidding. I, I should have. I should have been talking to you over the last six years because the way I got my advertising is just, it's all by luck. I got cold, like I cold emailed people. In the beginning. I was like, Hey, I have a podcast, you should buy an ad. They got back to me. And I was like, Oh, my numbers must be okay.

Michelle Bauer (Alswager) 4:40
Yeah, I mean, if you have good numbers, I'm happy to help you with some of that thought process because I definitely do know a little about that.

Scott Benner 4:47
Tell you, Michelle, I don't know everything that I'm doing right now is just working by luck. So that's funny, but Okay, so to catch people up, and you know, it's been a long time And people might not know. But back in. I mean, a long time ago now I guess you you had a child who had type one diabetes, Jessie.

Michelle Bauer (Alswager) 5:10
Yes. So Jessie was diagnosed with type one diabetes when he was three back in 2000. I kind of dropped everything to just immerse myself in the world of diabetes for him. You know, whether it was skiing, snowboarding, being a director of JDRF, you know, just kind of getting really involved in, and then my son when he reached 13, said, Mom, stop talking about diabetes. I'm so sick of talking about it. So I went to work somewhere else for a while. And then action on February 3 2010. At the age of 13, is when Jesse passed away from DK, and 12 years,

Scott Benner 5:42
it's been 12 years since he passed. Yes. And how long has it been since he was diagnosed? Do you say 22 years? 22 years? Wow,

Michelle Bauer (Alswager) 5:51
he would be 25 right now,

Scott Benner 5:52
right now he would be? Yes. Okay. That's crazy. I just I'm drawn to ask you, if telling me that or saying that to someone? Does it stir the same emotions as it always has? Or does it morph over time?

Michelle Bauer (Alswager) 6:12
That's a great question. It depends on who I'm talking to. You know, I, you know, since I last spoke with you, you know, I've done a lot of public speaking and right before COVID hit, there was a between beyond type one and JDRF, there was the talk of having me speak at the summits. And then COVID happened and all the chapters closed down. And you know, that went in a different direction. You know, just yesterday, I went for a bike ride, I did a bike ride with the JDRF group. And there was a young girl named Kaylee who I had never met. And of course, she's like, Oh, what's your connection to diabetes? And I pointed to her Jersey, where it says mile 23, which is a mile of silence, the startup projesi. That's for anyone who's lost someone to type one. And she choked up. And so when it's like that, I hate telling them because I know it brings out emotion for them because they have the disease themselves. But, you know, it comes up in almost every client call, I have to be candid, you know, I say, Oh, I've been involved in diabetes for my adult life. And they're like, Oh, how's your son now? Or how old is your son now? So you just kind of roll with it after 12 years, I think. Yeah.

Scott Benner 7:16
Yeah. Do you have other children?

Michelle Bauer (Alswager) 7:19
I do. I have. So I have a stepdaughter from a previous marriage. She's actually 41. And then my daughter just got married. She's 28. Jesse would be 25. And then Joey, the baby is turning 22 In a couple of weeks. And I actually got married in 2018. So that's where the power came in. And I have two really great stepkids. Claudia and Alex, who are 23 and

Scott Benner 7:46

That's a big family. That's what it is. Yeah. So children who are who are blood related to Jesse? There are some in there, right? Yep. To he was middle. And not that this matters. But just for context. You were with Jesse's father. At the time of his diagnosis or No,

Michelle Bauer (Alswager) 8:09
no, at the time of diagnosis. Yes, I was actually. He was he was three and I was pregnant with my now Joey, who's turning 22. I was four months pregnant and married to Tom. When Jesse passed, we were divorced. However, we remained friends. And in fact, I would I would say, losing Jesse has brought us actually quite close. So we go, we go to his bar sometimes for happy hour Packer games,

Scott Benner 8:34
stuff like that. It's nice. Other kids have any autoimmune disorders?

Michelle Bauer (Alswager) 8:41
No, and knocking on some wood, right? They're still young. But no, not none. None have surfaced. I mean, they've been my inspiration of, you know, getting the first book written. But I'm, you know, the start of a second book for sibling grief is just starting with interviews.

Scott Benner 8:56
Okay. So this is a book you're putting together what you're building it right now.

Michelle Bauer (Alswager) 9:00
Yeah, yeah, to piggyback off the Jesse was here book, which is, you know, the whole story of, you know, the, the first year of grief, and then at five years and 10 years of what that looks like, the real feelings, you know, and I just, I just realized with all these parents that I've connected with, you know, I know about their kids and the struggles that they have. And so, I've been putting together a list and I have about 25 people who lost a sibling, whether they lost them, you know, when they were nine years old, or maybe they were an adult and lost their sibling, just just, you know, kind of how they feel and how they managed and questions that might have come up for them. Over the years.

Scott Benner 9:36
Do you find the grief that stems from loss is any different than grief that comes from other things? Like, you know, be just being diagnosed, for example, like, do they do they share traits?

Michelle Bauer (Alswager) 9:49
Yeah, that's a great question, too. You know, in my book, I actually talked about it like I the day Jesse was diagnosed. I thought it was the worst day of my life, right, like and so I can relate to any parent who's getting a newly diagnosed child. I know it's the worst day of their life, I can tell you the day of loss and the 12 years that followed, don't compare. It's like it's such a black hole, and hard to explain, nor do I want anyone to understand it. Because who wants them in their shoes? Right? Like, one of my very good friends just in November last year, son, Cade to fentanyl poisoning. And, you know, she called me up and said, I'm in your shoes, I had no idea what it's like to really stand in your shoes, you know, and now she does, unfortunately. So it's definitely different.

Scott Benner 10:37
I just interviewed a woman recently who lost her son to heroin and, and other addictions. And it's just, I find it to be an unfathomable discussion. Like, I don't know how to even I don't even know how to relate, I just all I can do is ask questions that pop up. Because, you know, usually in the course of one of these conversations, I'll end up saying, like, oh, like something similar, like that happened to me. And you kind of tried to find a, you know, a level ground where you can talk through things, but this is just one that's, you know, it's out on the edge.

Michelle Bauer (Alswager) 11:08
Yeah, I mean, the whole common ground, you know, like, we all kind of say the same things about like, like, I talked about it, my book about things not to say I have a chapter called, I don't care that your cat died. And it's just about all the like, kind of weird things people said to me over the years. You know, like, my cat had diabetes, I was like, great, that has nothing to do with my son. But in the end, what my the information I give back to people is, we know that you don't say it to be weird, you're probably just fishing for anything possible to relate to your point. So you know, we're forgiving on it. But yeah, sometimes just saying, I don't know what to say, is a really good thing to say.

Scott Benner 11:47
Yeah, that's what I find I, I've actually come down to just like, I go, well, that sucks. Because I don't know what what could I say that would bring you any kind of comfort? So it begs the question, then, what does bring comfort at that point? Because what what stops you from? I mean, everybody listening, who has no context is thinking I couldn't do that, that would destroy me, etc. But here you are, you're not destroyed. So what are the steps you took to avoid this being the end of your of the end of you as well?

Michelle Bauer (Alswager) 12:19
Yeah, also a really great question, Scott. You know, it's, it's one day at a time, it's Evan flow, it's everything you kind of hear people say about grief that you got to you don't have a choice, you're still going to wake up tomorrow. Right? And I would say, for me, in the early days, it was my kids, right? Like, I had two other kids that I had that put on a face and, and you know, be okay, for them and with them. You know, this is kind of how it goes, you know, and I say in my book, that I was never going to take another family photo, I was never going to send a Christmas card, just because my family wasn't intact, right? Like, never would it be intact. And I said that it may be your one, set it again at your foreign the book, and then, you know, flash forward 2018 The day I got married, you know, we took our first family photo. And here we are, you know, 12 years later, and I'm pondering that this year might be the year to put out a Christmas card.

Scott Benner 13:16
So time,

Michelle Bauer (Alswager) 13:19
time, and you have to allow yourself joy. And I think, you know, the group we put together at beyond type one back when Sarah Lucas was CEO, and then Tom, we put together Jesse was here. And there's another place I find a lot of comfort is it's all these other parents who've lost a child to type one that can kind of commiserate or talk about happy moments or, you know, how, how they're managing their guilt on that day. Maybe?

Scott Benner 13:48
You know, since you brought them up, let me ask you so I have a tiny bit of knowledge here. Not very much. So Tom passed away unexpectedly. Were you working together when that happened?

Michelle Bauer (Alswager) 13:57
Yeah, Tom and I were very close friends, actually. Tom and I had a habit of, you know, when something got controversial, he saved got a minute. And then we'd get on the phone and have a virtual Happy Hour and just vent for, you know, an hour and have some fun. Yeah, he was only 33. He passed away in his hotel room in when he was working in New York, and I don't have any information. I wish I had information, but I don't know what happened.

Scott Benner 14:25
So I didn't ask you to ask about him. I asked to ask you. What's it like when you experience a loss again? Oh, I

Michelle Bauer (Alswager) 14:33
gotcha. Yeah, well, I mean, that is a great question. It was probably the closest person I lost since Jesse you know, that I spent a lot of time with Yeah, it brings a lot to the surface a lot of why and you know, yeah, I mean, when they're close to it hurts. But yet, you know, my parent loss. I know this is gonna sound really weird, but like it was, I think more doable, because I had already lost Jessie like I already lost a child. So like, I kind of know, the depth of pain, at least that was chronological. And maybe with Tom it just hurt because he was still young. Right?

Scott Benner 15:12
Well, it's such an interesting like to keep talking for about this for a second Sarah, but I interviewed once to say, I know it would be a fallacy it but I mean, I, I talked to her for an hour once. And then she had significant health issues, and that she's like, Listen, you know, for for a couple of hours to a few days. But I was rocked by that a little bit just because I had met her. And it seemed out of the blue and she was young, etc. And it it it impacted my life for a couple of days, not nearly the way it would you or somebody who knew her well. But that's what made me ask because because I I'm at best tangentially related to this person. I hear that news. And it's shocking to me. And I was just wondering if, you know, if you had similar experiences, just well, death engine,

Michelle Bauer (Alswager) 16:03
I can tell you what happens to me with death. You know, when when Sarah Lucas, you know, after her brain aneurysm and her retirement from beyond type one, she lost her husband, Don, suddenly, and it's like, my first instinct to anybody is I wrote a book. It's about grief, can I send you a copy of my book, it's just like a knee jerk reaction that I have with everybody. Like, you know, we have a house, like a cabin up on a lake. And we spend a lot of time there. And it's funny, because this little bar has copies of my book on the shelf blocker because I'll get to talking to somebody and they're like, Oh, I just lost my wife. And this happened. And the bartender will come forward and go, here's a book. That's I can't help myself. Like, I just, I just, it's my goal was just to help other people through their pain and know, they're not the only ones that feel everything, that feeling.

Scott Benner 16:53
So now I feel like I've, for the first time have an experience that's commensurate to yours. Because when I feel when I hear people talking about their struggles with diabetes, I'll say to them, like, I have this collection of episodes that will help you like I know, I know, in my heart, they will help you or at least they have a really great chance of helping, and it feels like a compulsion to explain it to share it with them. Yeah,

Michelle Bauer (Alswager) 17:15
yeah, absolutely. That's just that's that's been my reaction ever since he passed is just like, How can I help people with my experience?

Scott Benner 17:22
Right, right now that's really something okay, hold on. I got over a little tiny bit overwhelmed. Michelle, give me a half a second. i In fairness, the people listening know this, I have sometimes trouble with my iron levels. It's a little low right now. So I'm closer to crying than I usually would be in this situation. So give me a half a second. Anyway, I'm getting an iron infusion next week, and I'll be okay. But, but it's, it's funny, when when it dips down, I go, like in two different directions. Like you can either make me angry quick, more quickly, for no reason. Or I get a little weepy if something sad comes up. So the whole day getting ready to talk to you. I thought, I hope I'm okay. Like, I don't like act like just in a way that isn't appropriate. But I'm okay, I'm doing alright. Well,

Michelle Bauer (Alswager) 18:11
you won't be the first person I made cry this week.

Scott Benner 18:15
Better, I gotta tell you something. Michelle. That's usually my line. Just so you know. I've been making ladies on the internet cry for years. But about diabetes, and some guys. So you so your first book has been out for quite some time. Right? Am I right?

Michelle Bauer (Alswager) 18:33
If it was slated to publish in April of 2020. And as you and I both know, that's when COVID smacked everybody. But we the idea was JDRF was gonna have me on and like I said, and and then to be able to go into libraries and and do book talks and grief groups and things like that, which, obviously, we just continued to release it and get it out there. But yeah, it just went into another revision, which just got loaded up on Amazon. And now we have an e book.

Scott Benner 19:01
Oh, cool. So I'm looking at it now. Just it's Oh, that's Oh, that's interesting. So it came out kind of 2020. But you did the revision more recently, because I see the date on the Kindle is is newer.

Michelle Bauer (Alswager) 19:13
Yeah. And it's still in the process of changing over the book cover. We changed the book cover. Because you know, right now, you know, it's a picture. It's a real picture of my son with his thumbs up walking away. It was the last family vacation, it felt really appropriate for the book. But we kind of felt my publisher felt well, maybe p only people who have a child with diabetes are reading it, or maybe people who lost a teenager think it's relevant because of the cover. So we changed it to be a little bit more general because the the notes I get from people like on LinkedIn, people who've picked up the book and read it. I mean, it's not just people who've lost, you know, a teenage boy, it's someone who kept miscarrying or somebody who lost a child at age one or, you know, someone who lost a sibling. It's really been interesting. So we just wanted it to feel more are like this isn't just a story about what it feels like to lose a teenage boy, you know, I know that other people benefit

Scott Benner 20:15
let's talk about the Dexcom G six continuous glucose monitor for a moment, shall we? dexcom.com forward slash juice box. Classic spelling on juice box all one word, the Dexcom G six continuous glucose monitor. Listen, I don't need this website. My daughter has been using a Dexcom oh gosh, for a really, really long time. I said, oh gosh, because I can't I can't even think of a time when she didn't have it anymore. How long it's been. I've picked up my phone by the way. And I'm going to tell you a little story about how we use Dexcom in just the past two hours. So Arden left a lunch today she went out to lunch, she came back and her blood sugar was a little high around 150. But she wanted a piece of cheesecake. We made her a cheesecake here at the house. Actually Arden and I made it it actually came out really good. We were really proud of our stuff that has nothing to do with the Dexcom ad. Nevertheless, we needed to Bolus for this cheesecake in a way that would not let a high blood sugar happen later. But you've got this 150 ish blood sugar and what are you supposed to do? Right? Well, here's what we did. We made a Bolus for the cheesecake that also incorporated a correction for the 150. All right, these are our results and yours may vary. But we watched the Dexcom as her blood sugar decreased. And then when we got to right where we thought was the right spot, which by the way for us in this scenario was 117 Diagonal down. Because yes, the Dexcom shows you not just the direction but the speed. It's falling. And so that diagonal arrow tells you something about the speed. But I digress. We cut the cheesecakes served it up. And it is now let me give you an exact number I can look right on the graph. It is now let's see that happened at 420. And it is 547 now so it was like an hour and 15 minutes ago, right. Guess Arden's blood sugar right now. And the cheesecake is long been eaten since now. Blood sugar is 78. That is an example of how we use the speed and direction and number that Dexcom gives us to make a good Bolus. And there are many other examples and ways that I'm sure you will find to use Dexcom for you dexcom.com forward slash juicebox. When you get there, if you try to leave the webpage, it might say to you are you interested in a free Dexcom G six sample? Well, if it says that just click on Request to sample. It's that easy. The N pen from Medtronic diabetes is a reusable smart pen that uses Bluetooth technology to send dose information to a mobile app. That mobile app will be on your cellular device. Do people even say that any more cellular device No, they just say phone at this point anyway, not the point. Anyway, here we go. And back to it. When you have the M pen, it's going to help take some of the mental math out of your diabetes management by offering dose calculations and tracking the in pen for Medtronic diabetes is an insulin pen. It's everything you expect from an insulin pen. But then that app it gives you current glucose values meal history, dose history and activity log reports glucose history active insulin remaining and a dosing calculator. If you're ready to try it, just scroll down at ink pen today.com and fill out the very short form and hit submit. If you want to know more continue to scroll and learn more about the ink pen. Head over today because some people may be eligible to get the M pen for as little as $35. In pen today.com in pen requires prescription and settings from your health care provider, you must use proper settings and follow the instructions as directed, where you could experience high or low blood glucose levels. For more safety information visit Impend today.com. I had so such a similar experience. I wrote a book a long time ago now. And it was about being a stay at home dad. But there's a chapter or two towards the end. That's about Ardens diabetes, but the book is far and away. 95% has nothing to do with type one. And when I hear from people who have some sort of a connection to type one who have read it, they feel like the books about diabetes. It's funny, it's so interesting. And then people who don't have a connection to diabetes are like Oh, I was interesting to learn something about diabetes at the end of the book. It's very interesting to see what people connect with I guess and and then therefore how they interpret it. And I saw I take your point. So

Michelle Bauer (Alswager) 24:59
yeah, I mean some then that made me think of that I think is pretty great about 2022. There's not a lot that's great about 2022. But is that people's resources are so much better than even when Jesse passed in 2010, as far as me connecting with other people who, who shared what happened to me. And what I mean by that is, you know, I lost my son to type one diabetes, I think it helps me so much that I have these people that lost their child that type one, so it's very relevant. Whereas I may not feel as connected as someone who had a miscarriage or someone who lost a child to suicide. Right. So now we have this ability to talk to people who truly are sharing the exact grief we have.

Scott Benner 25:40
Yeah, no, it's the podcast has taught me that, honestly. Because prior to the podcast in 2015, I would write something online and get a couple of notes. And people were like, Oh, your blog really helps me or I found this interesting or helpful. Thank you like that kind of thing. I now know, over exaggeration, I hear from 10 to 15 people a day now. So just the ability to share information in a different way, has opened up. And you know, like you're saying, in this time, where everybody kind of got stuck in their house for a second. Even the people who are probably not using the internet so much, are like, well, let me see if I can't see more of the world here. Since I'm stuck in my bedroom, or wherever I am. You know what I mean? I just think it's, it's, it's and it's really valuable, like I getting, you know, you can have this book. And if you can't get it the people. It doesn't exist, really, you know what I mean? You have to be able to put it in their hands. So who would you say it's for the book?

Michelle Bauer (Alswager) 26:42
The book? Yeah, I think it's anyone who's experiencing some kind of grief, or anyone who wants to help someone through their grief. I think, like, I've heard from a lot of people whose like, maybe their friends child died. They read the book, and it helped them kind of see inside their heads, I think. I think like I said, like, you know, I know people have stayed at my cabin, like you will we rent out our cabin. And now she's a newscaster, and she had a lot of miscarriages. And she just happened to pick up the book and read it. And she was like, I had no idea I had not dealt with my grief, completely. She's like I sobbed through your whole book. She's like, I just nodded and was like, that's so helpful, like someone else felt my pain, right? So I think it's anyone who needs closure to their grief, and just needs, you know, to feel like to nod with somebody, right? And so yeah, I was in target. And I saw a cute little four year old boy in a cart. And it made me mad because he looked just like my son, and I miss my son, and it's life's unfair that you get to keep us on, right. So you know, anybody who's experiencing grief, I know people who just lost a parent, like, it's always I try to explain it that it's always as good as like your worst loss. Meaning, if the worst thing you've ever lost in your life is a cat, right? That's only lost, you don't know any other kind of pain of grief, right? And then maybe you lose your parents. That seems like the most painful, right? So it can be anybody's grief, even a pet.

Scott Benner 28:12
It's why I tell people that you can't you can't judge your thing against other people's stuff. Because the worst thing that's ever happened to you is the worst thing that's ever happened to you. So, you know, you can't say, Well, you know, I have diabetes that's worse than this, or, you know, I have diabetes that's better than that. Because it's, you know, the next person might I was interviewing somebody recently, and their lives were just going along, like nothing was wrong, you know, what I mean? Like things were going the way they expected and health was all great. And then all the sudden a thing happens. And it's a tragedy to them. Because their their level of expectation was different. And, you know, is it fair or not fair? Like, I don't know, that seems kind of arbitrary, you know, to say that, I mean, it would be nice if everybody got the same level of happiness and then fulfillment. But I mean, that's seems kind of unreasonable. But But I just again, I just really take your point that it's I don't know, like, it's not a thing you can put yourself in your shoes, but it is nice of you to be able to look up and understand like this is, you know, the example of the cat, like if it's, you know, if you're 25 years old, and your cat died, and it's the first thing you've lost, it's, it's pretty crazy.

Michelle Bauer (Alswager) 29:24
It's a major loss to you. Yeah, yeah. It's funny too, because, you know, most of most of the reviews I got on Amazon or, you know, the five star and really good nice write ups. And the people who complained were the ones that were like, I have a child with type one. And she doesn't tell me exactly what happened to him, and then gives me a lower rate. I was like, Well, the book wasn't about you finding out how exactly my son died. Even though I have a chapter. You know, a lot of people ask me exactly what happened and I don't normally share it because I try to explain. I don't want to go through that day again, ever. Like I don't want to relive that in my mind. I did it, just in reviewing my book like 10 times during revision until my publisher Dan, I'm like, I don't ever want to read that chapter again. Right? Like, I'm done with that chapter of my life and I thought worth revisiting. And so I always say to people, when they say, Well, what happened? And Michael, you're welcome to buy the book.

Scott Benner 30:18
I'm not saying it again. Yeah. You know, it's funny, through my experiences with people, my expectation there is that they want to reverse engineer your experience to stop it from happening to them.

Michelle Bauer (Alswager) 30:31
That's what yeah, they want to hear that I did something wrong, because that

Scott Benner 30:34
will make them feel like it's not possible. Yeah. So you know, excellent. Michelle, I, since you said it out loud. They, they want to know you did something wrong, so that they can have the belief that as long as they don't do something wrong, it'll be okay. Yeah, I mean, false comfort you try to give yourself when your kid has diabetes is using insulin.

Michelle Bauer (Alswager) 30:56
I mean, there's two things I've noticed the most about having it's maybe something more listeners hearing that have kids with type one is, number one, is DKA, is worse than going low in a lot of ways. Because people let their kids rock a 600 blood sugar and let them eat or drink a root beer. And I sit there and cringe and I'm like, your agency is going up and going up and going up. And then when something bad happens, it's going to happen real fast. So I've been doing a lot of education on DKA, because a great number of the parents that are finding me and Jesse was here at the Facebook group are losing their college aged kids to DKA. That's what I'm seeing more of the positive. And, you know, granted, I'm not a survey taker on the Facebook thing, but we're seeing less and less of people losing their kids and onset, which I applaud, it means we're getting the word out of warning signs and doctors know the warning signs. Otherwise, I'd be seeing a lot more people coming through our door, and it's less and less with those people.

Scott Benner 32:01
That's that is good to hear. It really is I that's something so kids go away to college, they either don't know how to manage themselves or decide not to, and their blood sugar's rise and rise and rise, and then they then the dka comes.

Michelle Bauer (Alswager) 32:18
Yeah, I mean, it's that burnout, right. 10 year mark, for a lot of people is a burnout. You know, you know, we got to put our mental health first for some of these kids that, you know, they got, you know, it helps them to deal with it. I mean, I know people whose kids are, you know, for three weeks not taking insulin and not testing, just because they want to feel normal, and they're at college. So the parents don't know what they're doing or not doing. I mean, luckily now they're CGM. But But yeah, I mean, it's these college kids, or these college kids that do die from DKA. They don't tell their roommates, they have type one diabetes. And it's a hidden, it's a hidden thing. So when they're acting funny or being weird, they're not. They're not saying hey, man, you gotta call your parents or, Hey, you gotta get to the hospital. They just think they have the flu or something.

Scott Benner 33:03
Right? Yeah. So that idea of I'll hide it, nobody will know. And I'll get through this. It's all I mean, whether it's not taking your insulin or not telling somebody about it, that scenario, it's all function of just trying to pretend it doesn't exist. Yeah, it is not something you can pretend

Michelle Bauer (Alswager) 33:18
away. That's for sure. And the other thing I find fascinating, even in like, you know, my current group of friends, I, you know, I'm very proud that I still stuck with all my type one word friends and ketones. I am flabbergasted at the number of adult friends I have that never test for ketones.

Scott Benner 33:37
So we tried to, we tried to like lay that out in the podcast, the best we can because there's there's a couple different ways to think about, like, if you're eating low carb, like you're using a certain lifestyle, you might see ketones in your diet, like in yourself no matter what, right? But ketones from not using insulin. That's different. And the one thing I find that confuses people a lot is that they don't think you could have ketones at an enraged number with which you absolutely ketones can exist whenever there's not insulin present. So if you're, I don't know, sick and your blood sugar won't go up, and you're afraid, well, I'm gonna get too low. So I'm gonna shut my insulin off here. And your blood sugar hangs in the 80s or the 90s. You think, oh, this is great. It's not great. You could still develop decay very quickly, too, because you've you've taken the insulin away.

Michelle Bauer (Alswager) 34:24
100% Yeah, exactly. Well, well said,

Scott Benner 34:28
well do my best to tell people and it's a it's an uphill battle sometimes because it is. It is one of those things like the the alternative is, you know, if you spike once the 200 and come back down an hour and a half, you probably don't have to check your ketones. And so you're trying to keep a balance between, you know, being aware and vigilant and not being so hyper vigilant that you're, you know, busy making yourself crazy in times when it isn't necessary. It's a it's a balancing act.

Michelle Bauer (Alswager) 34:57
It is. It is and you know, I mean Um, I have a friend who competes as a skier and she would go over to Austria and I kind of was her like diabetes mom to keep her motivated. And, you know, I'm like, she's like, I'm throwing up, I'm sick. When I'm in Austria, I don't want to go to the hospital. And I'm like, Lauren, you're rockin, you know, some pretty, pretty high ketones. As much as you don't want to be at the hospital, you need to be around around the right equipment. So

Scott Benner 35:24
yeah, sometimes you just have to stop and do the right thing. It sucks. And, you know, I listen, I went got a blood test this morning, before I talked to you, because I'm like, I know where I'm at. I know what I have to do. If I don't have this level of reading, the doctor is not going to help me. It's going to take some days to put into practice into into motion, like, let me just go do this thing. And it's important to put yourself first and are the people you're helping and I guess we're I guess we're people. I mean, again, you told the story about the skier. It feels a lot like the idea of people who go away to school who are just like, like, let me just push this on the backburner. I just want to pretend it doesn't exist. You know, no, no, I understand. Let me just switch gears for a second. So you said you were at diabetes daily, which then eventually became, which got sold, and then the business moved to thrival? Is that right?

Michelle Bauer (Alswager) 36:17
Yeah, that's always been somewhat, the parent company is thrival. So we just got rid of the website, part of what we do. So now we're a panel of, I mean, as far as it relates to diabetes, we have over 50,000 people living with type one and type two diabetes in the US on our panel doing surveys and interviews for every company you can think of. So it's been it's been a ride, like, it's, it's a lot of fun.

Scott Benner 36:42
So when a company is thinking of making a new thing, or changing something, or adding a feature, and they want to hear from people who have diabetes, they can send you a survey that you can then send out to the people who are in your group.

Michelle Bauer (Alswager) 36:54
Yeah, so um, that's exactly what happens is a company will reach out to us and say, Hey, we have needs for the coming year. And maybe I work with marketing teams that are trying to figure out how to get the messaging, right. I work with the products where, you know, maybe they send the product to, to the person and they get to test it for two weeks or like, think of a telehealth app. Maybe they download the telehealth app. And then they give feedback over an interview and say, How did you like it? Did you find it easy to you know, What didn't you like? And so those are the product managers. And then there's some ones that are bringing product. You know, it hasn't come to market yet. Right? Like maybe it's a new wearable, you know, that right now is in France, but it's coming to the US. So they just hit me up if they want some surveys done in diabetes, we actually do mental health and a few other areas now, but But yeah, that's what we're doing.

Scott Benner 37:42
That's interesting. It's a people who listen to the podcast also are people who run these companies. So I thought I would just like, you know, let's just say it there for a second. I appreciate it. Listen, I You're a friend of the show. And Dave is I feel very warmly about Dave over the years. So absolutely.

Michelle Bauer (Alswager) 38:01
Well, and you know, do you know who we scored may 1 to work with our company know, Manny Hernandez.

Scott Benner 38:07
Oh, Manny. I love Manny. No, when we

Michelle Bauer (Alswager) 38:11
Yeah, so we have Manny, he he is the person that's in charge of all of our partnerships and then doing like finding more panelists, right, and getting good relationships with like Ada, Ada and things like that. So that we find the right populations

Scott Benner 38:24
to ask Manny basically put together what I think of as the probably the first big online community for diabetes that doesn't exist does it not exist anymore.

Michelle Bauer (Alswager) 38:35
So diabetes Hands Foundation, and I believe your plastic can also have to diabetes. They did it what happened was when Tom shirt was up on tech one he worked with Manny to bring it on board to be on type will be on type one is now called Beyond type two.

Scott Benner 38:51
They blended it with that I see. Yes.

Michelle Bauer (Alswager) 38:53
And all the Spanish. All of Bian type one and type two is also in a lot of languages, but a big Spanish population as well.

Scott Benner 39:01
Yeah, no, I get contacted constantly about translating some of the series in the podcast, I just can't figure out how they will accomplish it. So well I can I just don't have the money for it. But I need to voice I basically need to voice actors to sit listen to stuff. And then you know, speak it as it's happening. And I just don't know how to get it together. I guess is my is my problem. But to say that I hear about it a number of times a month from somebody is not an over exaggeration. Like Please can you please translate this into Spanish so I feel the same

Michelle Bauer (Alswager) 39:35
way about we didn't do an e book at first we finally put the eBook out and I'm getting so many things for that. But same thing got like doing the we got to find a voice actor to to do like, what do you call it books on audio? We haven't done audio yet.

Scott Benner 39:48
Yeah, that's um, it's just it's just I looked a little bit closer. I keep saying like somebody should sponsor it. You know, like, wouldn't you want to be the one to sponsor the Spanish content, like say it and I say it and I keep waiting for somebody to spring forward. But hopefully one day someone will. So I keep talking about it. So hoping, hoping someone will hear me. That's interesting. Okay, so Oh, and Manny did me a long time ago when I was trying to figure out what direction to move the bloggin. Many. He really gave me a lot of good advice. He's such a sweet guy.

Michelle Bauer (Alswager) 40:23
We really, I'm sure he'll listen to the podcast. Oh, well,

Scott Benner 40:27
hi, Manny. How are you? Should come on. Yeah, I mean, that's a that's an interesting story about what he started and what it grew into, and how he I mean, he left it, it got melded back together, like that whole thing is, people don't people don't know the effort that goes into you having a board, you know, web space where you can go and talk to other people at diabetes, it's a lot more effort than you might think. Michelle, is there anything we're not talking about that we should be talking about?

Michelle Bauer (Alswager) 40:54
No, I don't think so. I mean, the main thing was the grief book, Jesse was here. And if there's anyone listening that knows somebody who's lost anyone to type one, because we do actually have it for spouses and siblings at such, at beyond type one that Jesse was here, and then look for the new sibling book that will should be out within the year,

Scott Benner 41:16
you're gonna have your next book will be out in about a year you think? So? Yeah, writing a book is, it's so much work. I, I just, people say to me, are you gonna write another book? I was like, Ah, it's a lot easier to make a podcast, though. Maybe when the podcast is over? All right, one more, but it's just a lot of effort. And

Michelle Bauer (Alswager) 41:35
I think for me, it comes down to like, I look at my two birth kids, Samantha and Joey. And, you know, I dedicated my first book to them, like for giving me a reason to tie my shoes in the morning. You know, that was my dedication. And then there's so much I don't know, that's gone through their heads, right? Like, did I do things right that I did I neglect them, because all I talked about is Jessie. And so I'm really wanting to dig into those siblings brains, doing it for them, you know, to get this second book. So it's really their story is coming together. In this next one, about, you know, I named it tentatively, but I'm still here. You know, like dealing with the kids that are left behind and doing right by them.

Scott Benner 42:12
So that's interesting, right? Because those siblings have, there's a duality going on, right? They lost a sibling. But then they lose a parent, but the parent is looking them in the face still. And that must feel like you're almost purposely ignoring them, even though obviously, you're going through a situation that you just can't break free of at the moment. So is that? Does that feel like abandonment?

Michelle Bauer (Alswager) 42:39
Yeah, you bet. Like for sure. I mean, I both of my kids would tell you that. They've had lots of apologies for me. And like, Man, if I wasn't with it for those first five years, like, I did my best I got you to school. I said, you know, but I probably dropped some things that wouldn't have dropped, like, was it that important for him to, you know, for joy to play baseball, Little League. And, you know, I just didn't push in those directions. But we're all really close. They're, they're so close. You know, we worried when Jessie passed that, you know, there's eight years between Samantha and Joey. And like, how are they going to bond? Right, like, there's the middle kids not there and flash forward. My son, you know, pays rent and lives with my daughter. So,

Scott Benner 43:20
so Joey would have been thriving through nine he was three years younger than, than Jessie. Right?

Michelle Bauer (Alswager) 43:27
Yeah. Yeah. So he was nine when and he's turning 22.

Scott Benner 43:30
So you're saying it using him as an example 1011 12 1314 You're pretty checked out for him?

Michelle Bauer (Alswager) 43:38
Pretty checked out. That's how I remember it. I don't really know how he remembers it. Because that goes into the other topic, which is, everybody grieves differently, which is a very true statement, which means I'm grieving the way I agree, which is, I'm very vocal, the more I talk about it, he's still here. He's still, you know, his life purpose, right? Where Joey never talks about how he felt through it all. You know, he talks to me about other things, and he's doing he's really healthy. But, but we don't talk about those that day, or those years where my daughter will talk about it. But my daughter, you know, when I was publishing a book, she's like, well, I'm never gonna read it. You know, she's like, I lived it. I don't need to read all that terrible time. And then all her friends bought copies, and she's like, Oh, I'm gonna have to read it now.

Scott Benner 44:24
Can I ask you a difficult question? Sure. Did you ever consider ending your own life after he died? No, that never popped in your head?

Michelle Bauer (Alswager) 44:35
No, and I'll say it differently. What pops in your head? Is this utter black hole of pain? I don't know how else to say it. That it's you don't want to die. You don't want to wait to have to see them. I don't know if that makes sense to you is it's like I said it early on. When it first happened. I no longer feared death. Like I could die. tomorrow and I wouldn't care. Like I didn't have the will like a will to live like really, really interested in. If someone would have told me in 12 years, Michelle, you're going to be happily married, you're going to have a beautiful cabin and all this fun and, you know, great kids in your life, right. But flash forward, you know, it's very different. Like, like, I'm glad I'm here. I guess it's how I would say it. I could tell any parent is you'll be glad you stayed.

Scott Benner 45:27
Right? Okay. I understand. Yeah, just because you hear people say that's a knee jerk thing. People say when they hear about somebody losing a child, they're like, Oh, I couldn't go on. Like that kind of thing.

Michelle Bauer (Alswager) 45:38
Every parent would say, I have no other choice. Right? Gotcha.

Scott Benner 45:43
But it doesn't mean that the pain you're talking about? Is it? Um, is it omnipresent? Is it like a headache? Or does it come and go? Are there? Do you wake up in the morning? And not remember, he's gone for a few moments like this, that kind of stuff happen?

Michelle Bauer (Alswager) 46:01
The true statement? Is it never, it never hurts less? It hurts less often. So, you know, like, I was telling my husband the other day, I had, I bet you had 10 dreams about Jessie and one night, but then I'll go six months without one. But the reality is set in so much to me, where I used to have the dream. And I'd wake up and go, Oh, man, right. He's, he's gone. But now my brain is so trained, like, even during the dream, where I'm seeing him and talking to him. And in my dreams, it's always me trying to find the insulin and trying to find test strips, because it's been 12 years, and I gotta get him to an endo. But they're going to be like, what were the healthy men for 12. And then in my dream, I stopped myself and go, This isn't real. He's dead. Wow. And truly comes to me and my dreams as that, so I don't know how to explain it better or worse. It just is,

Scott Benner 46:50
right? No, no, I am. That's the closest you came to make me cry that time. So just don't be sorry. I because I'm going to tell you right now, like, I'm a person who connects like that. I think things through ahead of time. And you know, when I was a little kid, I remember, like thinking through, like, what would I do if my parents died. And I don't, and I don't do it constantly. You know, I did it that one time. But the way it's kind of morphed as I've gotten older, is sometimes I look back and I remember things that way. And like, oh, I don't know, I think of the day that Cole got accepted on his first like all star team when he was like four years old, five years old, something like that. Actually, it was six, excuse me. And I remember taking him to a baseball field, where he was going to look for a list that was supposed to be hung up on a bulletin board. And he was super excited. And I it was a long walk from the car. And then we got the list. And he in his excitement, didn't see his name on the list. And he turned around, and you could see him like he was he was rejected, but he was trying to he was trying to be happy. Like he was trying to act like it was not a big deal. But I had already seen his name on the list. And he turned around, he's like, I didn't make it. But he was trying to smile through it and and I turned him back around and had him look again. And I remember the excitement on his face. And I'm telling you right now, it doesn't matter where I am, I can put myself in that car, take that walk down that path and experience that entire thing every time. And it used to be a happy feeling. And as he gets older, it's starting to become a sad feeling for me. And I just, I just think that's because he's, he's not a little boy anymore. You know? And, and I just, I know, I imagine, Michelle, that if I was in your position, I'd have a hard time not doing that. Because I think I would be one of those people who would run myself through scenarios, and I'm not certain if that would be good or bad. So

Michelle Bauer (Alswager) 48:55
I you know, whatever you think is the worst possible, like, whatever you can drum up in your mind of what it would feel like to lose your child. I can tell you, it doesn't come close, nor what I want you to ever feel what it feels like. The word I hear the most and I've used is it's it's it's a it's terror. The moments are it's just terror, and you don't wish that on anybody. Right and and so I make a point of I don't put sad scenarios for my other kids. I can't think that way they know that I always tell them like you have to call me more often than the normal mother because I need to know that you're breezing over there. If I don't hear from you for four days I'm going to worry so you know they know that

Scott Benner 49:41
they let you do they let you track them on Find My iPhone so you can see where they are.

Michelle Bauer (Alswager) 49:46
I don't but I will say I probably Snapchat with my daughter every single day. And and knowing that my son lives with her I'm okay.

Scott Benner 49:56
So this is this will sound I don't know how this will sound I don't actually don't care how it sounds, but you know, on the Find My iPhone app on iPhone, like my whole family is on there, even like my brother. And there's kind of a widget on my screen where it pops up and like everybody's little icons pop up and underneath of it, it tells you kind of where they are. And there's something incredibly comforting to me to watch people move around. And like, I don't, I guess it's because i that means they're alive. Right? Like, yeah, yeah. And, and, anyway, it's my brother. Let me my brother's 35 Michelle, you know, they mean, and like, Yeah, I'm like, I see him at work. I see him at home, I see him by the lake. And it just makes me happy to think that he's out there doing that.

Michelle Bauer (Alswager) 50:43
Yeah, I mean, my kids when they were younger, to like, you know, if they didn't answer a text right away, or answer a phone call, I used to, like lose my brain and try to explain to them why I'm irrational. But my daughter, actually a quick story is she when she was younger, but she was driving, she took Joey to target, just to go shopping something to do. And I'm like, Okay, fine. And I'm driving, and I'm probably a mile from Target. My daughter calls me and she's in sheer panic. She can't find Joey. They set his name over the loudspeaker. He's not coming to where he needs to be in. I'm in like, I'm losing my mind. So I'm like, Okay, I'm on my way. I'm coming. You know, I'm coming, I'm coming. And every bad thing is going through my head. And I could tell it was it was happening for her to where she used to think I was being irrational. But then it was real for her, too. And so to make it worse, I'm like, Okay, I'm a mile away. And she said, Mom, not at that target. I'm at the one on the other side of town. And then I became crazy mom, that was like, you put them on the phone right now. And I'm screaming at customer service and saying, You need to put an alert act as if he's been taken. I'm like, calling his name over the loudspeakers and doing it and do it now. And then I remember saying something like, I've already lost one sound, I can't lose another one. And I remember saying it to this customer service lady, of course, my son was playing video games, you know, listening to his name,

Scott Benner 52:05
ladies, is at the front of the target running the running this the loudspeaker and she's like, I don't make enough for this. This is,

Michelle Bauer (Alswager) 52:12
oh, my mom's screaming like, I can't lose another job.

Scott Benner 52:15
But it's, it is interesting, though, like, because I'm drawing a parallel in my head about diabetes. Because when you try to tell your kids like, look, it's important. You know, I need you to test or I need to know or you need to know, or somebody needs to be looking. And they're like, whatever, it's fine. You're like, No, you don't see the bigger picture, you don't understand what could happen. You have to me, Michelle, you have what I would consider to be the ultimate perspective. Yeah, that's all your perspective is just an you know, I kind of talked about it sometimes the way you talk about understanding grief, which is, you have a level of perspective, I don't wish on somebody. But but but we should take your we should take your opinion, seriously. Because you see, you see an aspect of life that that others don't get to say so.

Michelle Bauer (Alswager) 53:03
Yeah, but I stick with my you know, anyone that I meet who has type one, or their kid was just diagnosed, I'm like, you gotta let your kids live their best life. Like there's nothing I can tell you. That happened to Jesse that I would do differently as far as living life. And, you know, getting out there and doing what you can.

Scott Benner 53:20
Yeah, I'm always, you know, as time passes me, I lose what episode it was. And I can try to look real quickly. But I had a mom on once who lost her son in college. And she just said something during the conversation about she would have rather him have 21, great years than 40, soso years or something to that effect. And I've always, always tried to hold on to what she said, because I thought it was brave of her to say after he was gone. Because when Bell was at will hovers. Yes, we'll have a response. That's exactly who it was. And I just find that to be that that is a helpful statement for me as I've raised my kids, that, you know, we don't want something bad to happen. But we also don't want to get to the end and realize we've lived half a life, trying to make sure we get longevity. There seems to be a balance in there to me.

Michelle Bauer (Alswager) 54:14
Yeah, I actually got to meet Lindahl face to face. We're both doing a JDRF bike ride and Amelia Island a few years back. Which was which was great to experience with her.

Scott Benner 54:26
Yeah, she was she really she made a big impression on me early on when I was making the podcast. So I've always really, I've never I don't know if I've ever told her but I've always appreciated she was on the 19th episode of the show.

Michelle Bauer (Alswager) 54:38
I mean, keep dropping all these names. I'm going to end up tagging all these people.

Scott Benner 54:43
Do you think I'm just bringing up people to try to like get you to share the podcast with more people?

Michelle Bauer (Alswager) 54:50
No, I was still in contact with Lindahl so I hear from her quite a bit she still posts a lot about well,

Scott Benner 54:55
okay, thank ya know she she made a big impact on me. So, alright, well miss So I really appreciate you doing this. You would prefer if people bought the book on Amazon. Is that the best way?

Michelle Bauer (Alswager) 55:04
Yeah, I mean, that's the best way to go, I think as Amazon will get you faster. And of course, if someone wants to reach out to me directly, they can find it's on Facebook as Jesse was here, author. And I can do sign copies as well. Very nice. Thank

Scott Benner 55:18
you so much for doing this. I really appreciate it. Thanks, Scott.

Michelle Bauer (Alswager) 55:20
Thanks for having me on, of course.

Scott Benner 55:28
I want to thank one of today's sponsors in pen from Medtronic diabetes, and remind you to go to in pen today.com To get started with that insulin pen that talks to your app, and gives you all that information that many people have come to expect from an insulin pump. Thanks also to Dexcom don't forget that you may be eligible for a free 10 day trial of the Dexcom G six, where do you find that out? dexcom.com forward slash juice box. There's also links at juicebox podcast.com. And in the show notes of the podcast player you're listening to right now. But you can remember it dexcom.com forward slash juice box and of course in pen today.com. And if you're interested in hearing Michelle's first interview with me from 2016 It's called Jessie was here and it's episode 90. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast.

#721 Cutting It Up

Cutter has had type 1 diabetes for 50 years.

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
Hello friends, and welcome to episode 721 of the Juicebox Podcast.

On today's program I'll be speaking with Qatar who has had diabetes most of his life honestly, we talk about everything. I mean, nothing gets left out from what insulin he's using two stories involving the police getting called and everything in between. You're going to enjoy Qatar. While you're listening today, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. We're becoming bold with insulin, have type one diabetes, or are the caregiver of someone with type one, head over to t one D exchange.org. Forward slash juicebox. Fill out the survey help people living with type one help yourself help the podcast takes fewer than 10 minutes T one D exchange.org forward slash juicebox you know I've been toying with getting away from the word forward slash this thing slash I don't know if I'm gonna do it or not, though. T one D exchange.org/juicebox. What do you think? Let me know

today's episode of The Juicebox Podcast has two sponsors. The first one is Omni pod makers of the Omni pod dash the Omni pod five. And they also have a little thing where you might be eligible for a free 30 day supply of the Omni pod five. So that's pretty cool. You should check that out Omni pod.com forward slash juice box. today's podcast is also sponsored by the blood glucose meter that just got used in this house about 45 seconds ago. That Contour Next One blood glucose meter. Go check it out at contour next one.com forward slash juicebox. You deserve an accurate meter.

Cutter 2:13
Hey, Scott, my name is cutter. I have been a type one diabetic for hard to say this 51 years now. I was diagnosed at the age of two and I'm 53 now so that's where we're

Scott Benner 2:28
at. Wow. 1979

Cutter 2:31
Yes, sir. 1970.

Scott Benner 2:33
Wow. That's crazy. Also, I was born in 71. So that wasn't difficult for me. Oh,

Cutter 2:39
you're my little sister's age show. Okay. It's all good,

Scott Benner 2:43
either. Well, it's funny. I'm the oldest, I never even think of myself as like someone's little anything. You know what I mean?

Cutter 2:52
For sure, well, real quickly for you just interesting backstory on that my dad was also a T one D and he was diagnosed when he was a teen show. Fast forward to 1970. And as a two year old, I'm apparently wetting the bed to an amount that's impressive for an adult. And my dad said, he's diabetic. And my pediatrician told my dad not to get crazy and not to start thinking big just because he was a TI one day, and they gave me a blood sugar. And it was 600. And the doctor never doubted my dad again.

Scott Benner 3:37
How old do you think your father was at that point?

Cutter 3:40
Well, he's 25 years older than me. So he would have been 27.

Scott Benner 3:43
Wow. Okay. 27. So he had a baby at 25. And two years later, it's happening all over again. How about any year? Go? No, go, please.

Cutter 3:55
No, no. I was just second. I'm the middle. So yeah, back then. Things were different. He had his first one at 23 and a half. But yes, it was 25 needed

Scott Benner 4:05
to get you guys working. Yeah. How I don't want to speak too much about somebody who can't speak for themselves. But how did his life with diabetes go? Is he with a steal? Or did you have trouble? No,

Cutter 4:16
he's not. And that's what's interesting show many things have changed in my lifetime. I thought my dad was a very physical guy. He owned his own construction firm. He was good about health. He was great about that stuff. But he didn't have the education I grew up with. I grew up doing urine tests with a chemistry set and my dad was before me. So he unfortunately had a bad ride about the last nine years of his life and all of the complications you're told will happen did happen, and he ended up passing in 2000 2000 Oh, I'm sorry. Oh, that's okay. It happens

Scott Benner 5:02
to that. How old was he when he passed? 57 No kidding. Wow. Okay. And you, you know, it's funny. I was just Jenny and I recorded yesterday. And I remember saying to her that, you know, just having had diabetes for Jenny's had it for 33 years, she's pretty much lived through every modern version of care. But you've got 17 years on her.

Cutter 5:28
That's a stat. Yeah, it's it's amazing. I mean, I have shown many stories. But I keep in mind I came along when we first had urine testing where people won't understand this. But we had a little chemistry set with it small test tube and a dropper and some pills. And you would mix ratios of, I believe it was like three drops a urine, the 10 drops of water, put in a pill, shake it up and watch the colors change. But the only problem with that is that the urine coming out of your body is like six years, six hours old. So any blood tests you were getting, you had to do Shoop or math for and then blood testing systems came out and then CGM has came out. And now powdered insulin, which is rocking my world. So yeah, we have seen some amazing things. Yeah,

Scott Benner 6:21
no kidding. It's funny too. Is your your perspective is kind of extra. I think it's extra interesting, because 50 years, but you're only? Not much. Okay, three. Yeah, yeah. Yeah. Like, it's like, you know, usually when you meet somebody who says, I've had diabetes for 50 years, they often are in their 70s. And you're by yours, it's very uncommon. Okay. All right. So what is your first kind of like, remembrance around diabetes? Like at what age do you think you, you start to remember it?

Cutter 6:55
You know, I don't have a great memory. But because I've had it since two and nobody remembers things that too. It's been my whole life. So for me, I've got a lot of different stories. But for me, I guess the thing that I do think about the most, I have really bad lows, and I have experienced some really bad lows. Over the years. Part of having it this long, as you know, is oftentimes you can get on awareness. So I will regularly be at Well, when I say regularly, often sometimes I'll be at 50 talking to you like I'm talking to you right now.

Scott Benner 7:37
Right? But you don't me feeling like not even like that, like odd. I'm going to be lower feeling or nothing at all.

Cutter 7:45
Nope. I mean, it depends. Everything varies. It's day to day, but just just on Saturday night, I had a phone call with another T one D friend of mine, and he was at 43. And we were talking like you and I are talking right now. So it just happens. The only problem is when you have on awareness, you go from fine at 50. And next thing you know, you're 35 and you you can't fake it through 35. Yeah.

Scott Benner 8:15
And for clarity, you're not faking it at 50. It's just no symptoms, no symptoms whatsoever, even when other people witness you. So you've been in a situation where somebody else is with you. You're 50 and they don't know there's anything wrong.

Cutter 8:31
No, I will say yes, that is true. But oftentimes I do have some towels and I think everybody has their own. But if I start to not understand you if I'm working with you or something, and you have to repeat a simple process. Two times, that's when people are generally hey, you need some sugar. You okay,

Scott Benner 8:53
okay. You have a deficit. You're just unaware of it. Yeah, sure. Gosh, okay. All right. I understand. Okay. But then the next problem becomes is that the step after that going lower, is incapacitation of some kind of inability to help yourself and so you don't know that's happening so CGM technology must be I mean, if I asked you to put them all in order, the greatest thing has happened in your life.

Cutter 9:18
Yeah, for sure that and I don't know because I'm new to the I don't want to name any brands but the inhalable insulin is it feels to me like the biggest thing that's ever happened. But CGM are amazing ever since I've had my CGM, those super lows rarely rarely happen now. That's excellent.

Scott Benner 9:41
Now when we say I don't mind you saying so. You mean? I don't know how they say yes, sir. Yes, that's it. It's a present. And it's, it's just like you, you have it, it's just like an inhaler. Right.

Cutter 9:52
That's all like somebody that has asthma. You inhale it through your mouth and it gets into your blood and Forgive me, I'm not exceptionally technical with all of the stuff but it's mind blowing. It's, you know how when fast acting insulin, I grew up on beef and pork insulin, which was the animal and so on, and that takes a while to get working in your body. Then they came up with human insulin. And we thought that was the greatest thing in the world. And now a Frezza this stuff, you suck it down, your blood sugar lowers in like 30 minutes. It's It's mind boggling

Scott Benner 10:35
how long you've been using it.

Cutter 10:37
I've only been using it about a month. So I'm still in the honeymoon phase right now.

Scott Benner 10:42
Yeah, I have to tell you kind of like the reason it doesn't come up on the podcast more often is because it's, it's fairly new in the in the life of a drug, and it's inhalable, and that throws me for a loop. Like I don't I don't say there's anything wrong with it. I'm not saying it's gonna hurt anybody. I obviously don't know, not a doctor, I certainly haven't studied inhalable insulin. But it's, it's enough of a of a, of a brain worm to pause you, when you think about it, like wow, you're gonna inhale it, it's gonna go in through your lungs, like, is that okay? Long term, and I'm sure they have data, you know, over many years now. But I think the bottom line is, is that that would be a tough lift for me to turn to my daughter and say, Hey, inhale this. And so in my mind until there's way more time, I guess, with people using it, I'd have a hard time. I would have a hard time suggesting to my daughter to use it. But I understand why anybody would I mean, the idea that like you're basically have a high blood sugar that with a liquid insulin, you'd have a tough time brain down and you just kind of like puff puff this stuff and a half an hour later, your blood sugar stable, it doesn't get lower, it just goes to where you kind of more want it to be or kind of get low,

Cutter 11:57
low. Oh, no, no, for sure it can. And I'm finding and first of all, let me get back to I don't think that your fear is unfounded. And in fact, I think it's pretty smart. I think I also had the same concerns. I have a circle of T one D friends that I've known forever. And whenever something like this does come up, or our new treatment or whatever, I'll talk to them because I think I'm like you. I'm the guy that's 10th in line. I'm not the guy that's first generally. And I spoke to two of my friends about it. And they talked about it. Like I'm speaking to you about it right now. And because I have such faith in them, I was like, oh, okay, I'll give this a try. And I have loved it. Now, neither of them know either about the long term effects. But they're both super educated guys. And I took their faith. I took their word on faith and it has worked out so far.

Scott Benner 12:59
I wish you a lot of luck with it. So you're just basically shooting a Basal insulin and then using the inhalable for meals and corrections. Is that right?

Cutter 13:09
Yes, sir. But I also do take admelog, too, I still inject. It's just that the the Frezza for me, is more of a like you suggest and immediate meal thing. If I'm going to have a meal. It they come in three different doses. I'm sounding like a spokesman for they come in three different doses each. There's there's three different cartridges strengths, 12 units, eight units, and four units. And I was advised, and this is a little bit of a mind bomb, that they're about half as strong as liquid insulin, meaning when you take an eight, it's an eight unit dose, you're only taking four units of injectable insulin. I will tell you from my perspective, I don't that that doesn't work that way. For me my body chemistry appears to be that age feels like 10 Oh, it is super powerful for me. But that may not be the case for everyone. Interesting.

Scott Benner 14:18
Do you take it before you eat like in a Pre-Bolus thing situation? Or do you take it as you eat or after? How does that work?

Cutter 14:25
I take it as I you know right before like if I'm going to eat I'll take let's say we're eating at noon, we sit down at the table, I'll have it at noon and then the food comes but you have to you it's not like the injectable insulin. We're used to that people that inject taking your insulin right at the top before you eat and even then you're going to be behind and this stuff. It starts working in 15 minutes. I mean crazy working. And I don't mean that to scare people. I'm just saying if you take it at noon, and you're not Meeting until 1230. That's going to cause an issue.

Scott Benner 15:03
Gotcha. Okay. All right. Well, that's very interesting. I appreciate you explaining that to me. Yeah. And I appreciate you having perspective of what what seems so impactful. Tell me a bit, and then we'll get past this then. But when you say it's impactful, it's not because you're not injecting, right. It's the speed that it works at. Is that what you feel exactly?

Cutter 15:23
Great question. Because people since then have found out Oh, you must be so excited. You don't have to take shots anymore. I don't care about shots shots or my life. I don't feel shots. So that's not a big deal. But exactly what you're saying, being able to take it at noon, and have it work within 1520 minutes. that's mind blowing for me.

Scott Benner 15:48
I understand. I really do. Okay, well, you've said a couple of times, just in a short amount of time that you have a lot of stories. And I feel like there's a reason that you reached out initially, what's the when you first reached out? You had had a problem with law enforcement? Am I remembering this correctly?

Cutter 16:06
Yes, sir. You You most certainly are. Well, first of all, I just want to say that my respect for the police is through the roof, as I know, yours is yeah, I am not here to speak negatively of the police that that is not what I mean at all. But I think training for people that are professionals in that regard really needs to pick up very long time, not very long. About 20 years ago, I had a low blood sugar here in my apartment. And it was one of those where what we talked about earlier, you know, I was 60. And then next thing I knew I was 30. And I was in trouble. And it was just one of those perfect storms where I didn't have anything in the house. We've all been there. So I decided to get into my car and drive down to the gas station and get a coke or something. I got into my car I pulled out of my parking space and realized at that point, dude, you should not be driving. I live in a very busy area. So my parking space was taken before I was even out of it. And so I just, I turned off the car, I said, You know what, this is a problem. If I drive, I'm in trouble. I don't want to hurt anybody. So I'll just turn off the car and someone will help me. Next thing I know. I'm on my face in a pool of blood. And I apparently had gotten so low I passed out in the car, somebody called 911. The police showed up and not knowing any better even though I was wearing a bracelet, they took me out of the car must have quizzed me or whatever, I obviously didn't pass any test. Then they handcuffed me behind my back and let me go. And I blacked out fell face first landed on my forehead, the top of my nose, my upper lip, and was out fast forward a couple of minutes. And one of my neighbors good friend of mine is coming down the sidewalk sees me in the pool of blood and start screaming. He's like what happened? Whatever. Well, all the officers were together, you know, talking, trying to find out what to do. And they told him stay away. He's under the effect of either alcohol or drugs back off. And he said, he's a diabetic. And the officer said, Well, how are we supposed to know that? And my friend said, you had to move his MedicAlert bracelet to cuff on. So they then one of the and I mean, this is a great dramatic story. 20 years later, but then one of the officers came over and apparently felt my neck and said to the other police officers. I'm not getting a pulse. Well, he just must have not felt it. So my friend starts going crazy. The ambulance comes I have a wall so I'm okay. But there was a lot of physical damage done as a result.

Scott Benner 19:12
Imagine falling forward on your face without protecting yourself is not great. At all. Wow. Do you remember any of the situation? Do you have any conscious memory of it?

Cutter 19:23
I don't I remember waking up in the hospital being surprised being like what happened. I knew I had the low. But I didn't recall it at the time it was imagine blinking your eyes and opening them up in a hospital room. It was that fast. It was crazy.

Scott Benner 19:42
And you were obviously low enough when you thought to get into your car that more common sense. It was like I could knock on my neighbor's door and ask them for something like you were beyond being able to make those decisions at that point.

Cutter 19:54
Yeah, sure. I just didn't I just figure and again, keep in mind I You think I'm okay. Okay, I know I'm low. But I think I'm I'm like, Oh, I can get down to the gas station. I do it all the time. And yeah,

Scott Benner 20:07
so Wow, that's crazy. Also cutter. You're only like two years older than me if you keep calling me sir. It's gonna freak me out.

Cutter 20:14
I'm sorry. It's a term of respect. I know it is. But I don't

Scott Benner 20:17
deserve your first spec like. Okay, so that's what happens after something like that. Does someone apologize? Or does it just act? The people act like it doesn't happen? Is there any I mean, it's just 20 some years ago, right. But still,

Cutter 20:35
yeah, no, no, there is no apology. And I understand. I don't know how I feel about it. But there No, there is no apology. It involves. It involves taking it to court is what it involves. And you know, I think an apology would have worked. But yeah, so no, there was no apology. There was no reaching out. In fact, what I was even more surprised by no police officer came to the hospital after realized. And I don't mean to visit me. I mean, to follow the ambulance and find out what happened to me. And that was a little bit weird.

Scott Benner 21:16
Yeah. So I feel like you were about to say something and you stopped yourself. were you gonna say I can kind of understand not apologizing, because then it's admitting liability. And it opens you up further. From what

Cutter 21:26
I just mean. Now, again, this is 20 years ago, we live in a world today where a policeman can't look at you without getting a complaint. And I get that, but I think they deal with so many things. Yes. The short point is yes, you're right. I believe that if you do admit you're wrong. You're opening yourself up to all kinds of trouble. So yes, I agree with you.

Scott Benner 21:50
It's a weird, it's funny, you're you're so like, you have a lot of hindsight on the on the situation, obviously. Because you're very even minded about it, even just when you're explaining what's happening, like because you can really, like you can flip around to the other side and say, I wonder how many, you know, inebriated people that they deal with in a day, and you probably looked exactly like all of them. And it probably just becomes commonplace for them. That's, you know, I hate to say it, but their jobs are probably no different than somebody who works on an assembly line after a while. I mean, it shouldn't be like that, but I can see how it could get like that.

Cutter 22:24
Yeah, and that's the example I always give a perfect example you gave I always say, I was probably the 100. drunk guy. They arrested that day. So yes, I agree with you.

Scott Benner 22:38
That's crazy. I appreciate that.

Cutter 22:41
But they missed the bracelet. How do you honey, they had to my friend was right. They had to move the bracelet to handcuff me and that's when angered me.

Scott Benner 22:50
Yeah, no, I would I mean, listen, any, any way you decide to feel after this is over is completely justified. You know, you've got, you've got carte blanche to feel any way you do. So what did you end up doing? Or did you do nothing?

Cutter 23:04
No, I I'm not really at liberty to discuss it. But it did go to court and I was my medical car. My medical issues were all covered. Gotcha.

Scott Benner 23:17
Okay. So it's fair to say that after you do something like this with the municipality, at some point, when it's when it comes to a resolution, you agree not to talk about it publicly? Like with? Well, I,

Cutter 23:31
I had, I had signed. And I mean, I know it's a long, long time ago, but I had signed an NDA show. I'm not going to name anybody or any And truth be told, I don't know any names. Oh, I wouldn't I just, ya know, I

Scott Benner 23:46
just want to understand what like what the hesitation was. But that makes sense.

Cutter 23:49
Oh, yes, sir. That was that was that's the reason for the hesitation cutter.

Scott Benner 23:53
I signed so many NDAs in the course. There are times when I'm talking and I'm like, I'll say a lot. I'm like, I'm not even sure I'm allowed to say this. So I know. I'm with you. It's very like, it really does stop you in your tracks. Like I think I agreed legally not to mention this. So now that's

Cutter 24:13
been it's been, what, 23 years now for that event. So I'm like if they want to come after me, I hope they don't. But I think we're

Scott Benner 24:23
I think you explained that I mean, you didn't you listen, we don't know where you live us anybody's name. I think you're safe. Although it would be partially horrifying and partially hilarious that they came back to you after a podcast. They're like, we need that money back now.

Cutter 24:38
I'd be like, yeah, good luck. Here's a rock.

Scott Benner 24:42
See if you can't get blood out of this stone. Yeah. Why do you have such a good attitude about all this? Do you think?

Cutter 24:50
I think it's because I'm lucky that I've had it since I was two years old. I always say it's the only life I've ever known. I have Friends, I have a dear friend who got it when he was 10. And that, to me is scary. Because if I had, and I know that it can, you can absorb anything. But if I had 10 years previous to that of eating normal and just being normal, let's say, to have to make that change at the age of 10, or 13, or whenever you have to make it, I consider myself super lucky, because it's the only thing I've ever known.

Scott Benner 25:30
I understand. I really do. I often think that my daughter might benefit from that she was also diagnosed that too, so Oh, great. Yeah, I also I often think like, because she's got a very matter of fact, attitude about diabetes. In fact, there's an episode with her. The very first time she ever came on here, and people really got to hear let me she's 17. And also just very, I don't know, she's very matter of fact about having diabetes. And

Cutter 25:57
oh, that is so awesome. I'm sorry that that happened to you. But you know, she, and look at me 51 years, if you saw me on the street, you would have no idea. My doctors say that I'm in great, incredible shape. And I have not always been the super diabetic. And truth be told, I certainly am not now. But if I can make it this far, with all of the extra things we have, your daughter is going to live to be 190. Because I have not been good about it. And it's so great that with everything that they have now,

Scott Benner 26:38
it is certainly interesting how it can almost like a tornado, like, you know, pass one house and go to the next one kind of thing. You know, like some somebody like you can say, Oh, I did. I did. All right. But I wasn't, you know, I wasn't always great. And I'm fine. And there are other people who can have your same exact story. And they're just they're, they're devastated. You know, like, physically, it's, it really is. Boy, it seems kind of random coming out of that old time management style. Like some people just it just worked for them. And you know, it No, no, it's fascinating to me that, that that everybody can have such different. I don't know, outcomes coming through something.

Cutter 27:18
Yeah. And you know what, thank you for making that point. Because you're right, just because I've turned out okay. Doesn't mean that I don't have a twin. But does it mean that my twin brother would too? You know, you're right. Everybody's different.

Scott Benner 27:34
Are you married? Or have you been? You have children?

Cutter 27:36
I'm not No, I am single lifelong bachelor show. I don't have any of that. Okay.

Scott Benner 27:42
I was just wondering if, if we would see more diabetes in your in your family line going forward? Do you have any other autoimmune issues besides type one?

Cutter 27:51
Yes, I also have gluten. What? The celiac? Yes, sir. I also have celiac, which I've been told is related to tea one day?

Scott Benner 28:05
Well, yeah, it's an autoimmune disease. And they do sometimes seem like they travel in groups or pairs. At the very least, do you abide a gluten free diet? Or?

Cutter 28:16
Yes, I certainly do. I do. I was diagnosed probably about eight years ago, I had dropped about 40 pounds and thought, Oh, I've got something this is it's beyond. I went to a bunch of different doctors and in college, that's 25 years ago, a college doctor had told me, I think you're allergic to wheat. And because I was in college and knew everything about the universe. I laughed and said, Come on, man. I eat sandwiches all the time. And fast forward 20 years and a doctor said no, no, no, no, you're you're definitely allergic to wheat. They did the tests and all that. So yeah.

Scott Benner 29:00
When you were younger, what kind of an impact did it have on your was that like, or does it does it take hindsight now of being gluten free to see what was happening? Or were you?

Cutter 29:09
Oh, for sure. Absolutely. I had gluten. People with celiac, it's a lot like a T one D we're different people can have different experiences. One of and again, please keep in mind, I might be wrong here. So forgive me if I am. One of the side effects of Celiac disease is something called dermatitis herpetiformis, which is outbreaks that you have and I started getting those as a kid and they can be on your face. They can be on your arms and as a teenager, that's a nightmare. But it was it was a result of the celiac disease. So that that was interesting to find out so that that was the biggest problem for me as a kid I didn't have Any gastrointestinal problems, some people eat wheat and they feel it right away and they get really sick. I don't have any of that I could eat a full pizza right now. And I wouldn't feel it. I'm very fortunate.

Scott Benner 30:13
Okay, I'm not finding the syndrome that you're talking about, though. I my

Cutter 30:19
dermatitis her pet, it's just I mean, we call it a rash growing up, and again, I could be wrong about the technical term of it. But or the the scientific name of it. It Like It's like little, like, I don't even know how to describe it, I guess like poison ivy or rat bubbles that then if they break, they turn into assure it is not a pretty side effect.

Scott Benner 30:46
And you had it, you have it when you're exposed to gluten.

Cutter 30:52
Yeah, and I haven't had it for, you know, eight or nine years now. But I had it from up until I was nine years ago. And not all the time, not every single day, but it would come in batches. And because it was from wheat. Well, there's gluten in everything. So I couldn't make a rhyme or reason I would travel through life. And I would say alright, you know what, I'm going to stop drinking beer, because maybe it's beer. And then I would stop drinking beer and it would go away. And I would think, Oh, hey, which beer? Then it would come back? And I would think well, maybe it's carrots. No idea. It was trial and error the whole way.

Scott Benner 31:34
Yeah, there's too much data, too many different possible variables, you would never have known to just eliminate an entire section of like, like gluten, something that covers so many different foods and drinks and everything I say, well, that's interesting. And so what happened is what made you finally listen to the doctor age,

Cutter 31:54
age and the weight loss in all and he was a super great doctor, I'll tell you he, and I told him I said, Man, over the last 30 years, I have heard everything. And he said, Well, what have you heard? And I listed off the things you know, and I don't remember in what order or whatever. But I said the punch line was I even had one guy tell me I was allergic to wheat. You believe that? And he was a dermatologist. He He grinned a little bit. And he's like, I think there's some weight there. And then we did the test and all that. So by me saying that cut out probably I don't even know how long of trial and error from the physician. Yeah.

Scott Benner 32:37
So the weight loss. I mean, you lose that much weight. You think Oh god, I have cancer. Right. Exactly. That's exactly what I thought. Yeah. And then you're just like, I just can't eat bread anymore. And Oh, perfect. I'll take that.

Cutter 32:50
Yep, exactly.

Scott Benner 32:52
Did you find it hard to adjust your diet?

Cutter 32:54
Yes, I will tell you that at first. But you know what, I'm not a food guy. I'm not I'll eat. As long as it's in front of me. I'll eat it. I'm really not fancy. And so maybe it would affect somebody more who's a big foodie who really enjoys different tastes of things. For me, I thought it was going to be a nightmare. But like anything in life, once you do it, once you lock in and do it for a month, it just becomes normal.

Scott Benner 33:23
Yeah, you made me think of the other day I kind of I smoked a turkey breast, just the end. And I sliced it up and I had something else within I eat it for lunch yesterday. And later in the day. Arden said to me, what are you gonna have for dinner? I was like, I was just gonna eat more of the turkey. Just like, I don't I'm with you. Like I don't I don't need a big presentation or like, I'm just hungry and I need to eat something.

Cutter 33:48
You and me both your age. So you

Scott Benner 33:50
weren't you were able to and it's been eight years now.

Cutter 33:54
Yeah, it's at least eight, maybe nine? I don't know.

Scott Benner 33:57
Did the weight stay off? Or did you put it back? Well,

Cutter 34:01
it did stay off. I got lucky that it stayed off for a little bit. But then once I learned how to eat again, it came back but then I lost it again. And now I'm at a good place. So I'm happy

Scott Benner 34:13
guts. Excellent cuz I find that. You know, you hear people say oh, there's plenty of gluten free options, but a lot of times they can be very processed too. And then they're well and

Cutter 34:23
a lot of times they're crazy expensive. crazy expensive. But yes.

Scott Benner 34:31
Interesting. Wow. It's amazing. Okay, any more crazy stories other than fell on your face after being handcuffed or?

Cutter 34:41
I mean there's, there's so there's just so many the thing. Well, I'll tell you what interesting just this week. Just this week, I had a horrible flight back to from my home. I was home visiting and every time I fly what I do is I will buy food for the flight crew. And I provide a note and informational note that just says, Hey, I'm a T one D and I do it in a fun way. It's humorous and I say I'm a T one D, I do not drink. I don't take drugs. So if you see me acting like I am drunk or on drugs, I'm probably just having a low blood sugar. And then I tell them, I just say, hey, all I need is some coke. I just say it easy for them. Blah, blah, blah, give it to me in about 15 minutes, I'll come around, I'll be good. Everything will be good. But I made a mistake this time that I was unaware of. I have vaccine me. Do you know what that is? Yeah, it's the nasal it's like glucagon. It's inhalable, glucagon. And I had some and it's just like a Frezza. Only, instead of sucking it in through your mouth, you just blasted into your nose, one blast, like, like a nasal drops. And, and in the note, I said, Hey, if I'm blacked out worst case scenario, which will never happen, and never has, I say that two or three times, all you have to do is squirt this into my nose, and I'll be good in 15 minutes. Well, normally I do that when I get on the plane, I carry the food, a little bag of food that I'm giving them with the note and I hand it to the Lead Crew member. And they always thank me after post flight, they're always so wonderful. They say thank you so much for taking the time to tell us blah, blah, blah. Well, this time I made the mistake and gave it to the gate attendant, pre flight. They I looked over and saw her reading the note with a look of concern. And then she called over two people. And then there were five, and they were all reading the note looking at me like I was some kind of troublemaker, and I was like what is going on here? Well, they had a very large crew member come over. And let me know that if something and in a very pleasant manner, by the way, certainly not negatively. He let me know if anything did happen to me on the flight, they would not be administering the back semi. And I said okay, and he said okay, and I get that they're not doctors, I totally get it. So we get on the plane. And normally, the exact opposite happens. They'll give me a little more attention. I don't like it. But I get it. They're They're very nice. And they'll just check in. They'll be like, Hey, how you doing? I'm like, I'm great. Cool. Thank you. Well, this time, I was completely ignored for six and a half hours. Nobody looked at me. Nobody talked to me. They came by with food. They offered it to my neighbor. They didn't offer it to me. It was very strange. And post flight. I asked the Lead Crew member and I'm like, hey, just out of curiosity. What happened? Why did that gentleman tell me they wouldn't administer the medicine if I blacked out. And he was very cool. Again, very nice. He said, Well, you have to understand. We're not doctors. And I'm like, No, I get that I fully understand. And then this is where it got weird. He's like, Look, you have to imagine, if you needed help using the toilet, we're not going to help you use the toilet. And automatically. I sound like a nice guy with you internally, I get angry, pretty easy. And I'm like, wait a minute, are you comparing? Giving me a blast in my nose to having to help me use the toilet? And then he equated it also he's like, No, we wouldn't do that. He's like, You should bring an aid with you when you fly. If you're going in and I'm like, okay, okay. Yeah, yeah, it was it was rough. And then he said, believe me, I understand. I'm just like you. I'm a type two, two. And I'm like, no, no, I'm type one. And he was like, oh, oh, oh, that's serious. Yeah. And I mean, they were great. Again, I realized they're not doctors. But I said to him, I'm like, Well, what if someone's having a heart attack? And you give them treatment? That's an emergency situation. And he said, Yeah, but that's different. And so I didn't want to fight I just said, Okay, thank you so much for your time. I appreciate that. He was really pleasant.

Scott Benner 39:39
Yeah. Just they were just confused. That's all Yeah, they were confused. They didn't understand instead of coming to you and saying, Hey, this, you know, they should have had that conversation first with you not at the end of the flight at the beginning. And you could have clarified and said, Oh, no, this is what I meant. Or you know what I mean? Like put it on yourself a little so they don't get all like Yes. Sometimes people get uptight if they if you feel like you're coming back at them. And you just say, hey, you know what I meant was, I'm not going to pass out. I really this never happens, but just in case it does, here's an easy way out of this. And that's interesting. How long was the flight long, right?

Cutter 40:17
It was super long. Yeah, we six hours in 20 minutes.

Scott Benner 40:22
Well, I'm glad nothing happened. And normally, you fly fine, usually, right?

Cutter 40:27
Oh, I've never had a problem I've been flying for. Since I'm 12 years old was my first flight. Yeah, I've never had an issue.

Scott Benner 40:34
Cool. That's amazing.

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Cutter 45:03
It's been pretty wonderful. I'm a pretty private guy. I'm certainly not embarrassed about diabeetus. Not in any way at all. But I don't lead a conversation with that. I don't come in Oh, hey, Scott, I'm cutter. I'm a diabetic. You know, nobody, nobody does that. So. But the disease itself, in fact, I even have a hard time calling it a disease. I don't think that it's impairs me, but I know it does. But the hard part about it is, is that so many people have somebody they know that's a diabetic, but they're often type two. So there's so much misinformation out there. Nobody really knows about it or understands it, or everybody's got a cousin, by the way. All my cousin's a diabetic and he was treated himself horribly. And you're like, oh, geez, I'm sorry to hear that next. This is so having a community of people you do know that have had shared experiences with you is important. Case in point, have a Facebook group that I belong to that are just dear friends of mine. And we had a posting the other day, I posted a picture of an insulin syringe packet that says single use only. And because so many of us use a needle over and over again, I'm not saying it's healthy, but we all do it. I took a picture of it and just said, Hey, does anybody else follow these directions like I do. And I got a lot of replies back saying like, I change my needles once a year, and but they were jokes. You know, the next person was like, I used them until they bounce off my arm. And they were just a lot of funny. And I thought about reading that from a non knowledgeable person's perspective. And they would think what is happening with these people, but we get it because to us, we understand it. So I think having a community of people who understand the things that happen to you is super helpful.

Scott Benner 47:10
So not having to explain things that you intrinsically understand is just, I've imagined lightning, right? It's just it takes a weight off. So much. Okay, well, that makes sense. You find these people easier online than in person, or do you have a mix?

Cutter 47:29
Well, these are guys that I know personally, they're got we all went to, it's gonna sound funny. But we all went to a diabetic summer camp together. So we've been friends since we're 10 years old. So these are personal friends. They're not people that they're not strangers that I met in a support group. And hey, that's great, too. I'm fortunate enough to know all these guys personally. So when when this is happening, or when a phone call is made, or whatever, I don't feel embarrassed or weird about talking about it. Because you've been my friend for 40 years. I was

Scott Benner 48:03
gonna say, How long have you like, when was that summer camp? For me?

Cutter 48:07
I went when I was seven years old my first summer. So that was 75.

Scott Benner 48:12
Wow. You know, you still know those guys. Oh, yeah, for sure. And that crazy. That's amazing. Yeah, it's

Cutter 48:18
great. Looks like college. But yeah, yeah, no kidding.

Scott Benner 48:21
I know. There are people who absolutely adore diabetes camp. Like it's just, I mean, the people it's right for it. It's really, really right for I, we've mentioned it to my daughter a couple of times, she looks at us like we're crazy. So I think but but I think if I asked her to go to a camp for anything, she'd look at the saints. I don't think it has anything to do with it being diabetes, I think she's not. I think she's not a camp person. But I but I've heard so many great stories from people who have had just experiences like yours, just lifelong, amazing experiences.

Cutter 48:54
Well, and keep in mind, too, when I was seven, I didn't have a choice. It was my parents saying we think this would be great for you. And I had my home sick. And I probably had that. I don't know three days in and then once that third day was over, every summer for the next I don't even know how long I went. I probably went eight or nine years. I really looked forward to it show. It was a lot of fun for me.

Scott Benner 49:18
Can I ask you a question disconnected from diabetes? Why are you so good at this?

Cutter 49:22
You're very sharp.

Scott Benner 49:23
You're very good at this. Why are you so good at this? Why are you like there's no pauses you have your thoughts? You're, you're building your thoughts as you're talking. You're good in the conversation like you're there's no weird pauses like do you do something like this for a living or as a hobby or something like that?

Cutter 49:39
No, I just have a real big mouth and you can't shut me up. So you're, you're on the positive side of it. I'm sure if we were talking about something you didn't care about. You'd be thinking Oh, will you please just shut the EFF up?

Scott Benner 49:54
I've just been really, I mean there are times when people pause or they consider their thoughts for a second. But you've been clear and even when you've gone down sort of a flight of fancy during a conversation, you come back to the question every time you don't get lost, I just thought maybe you did this, or spoke to people for a living or something like that. But you should

Cutter 50:16
know. I don't know. Thank you. That's very kind to hear. I appreciate that.

Scott Benner 50:19
Thank you. That's amazing. I just communicating like this is not natural to begin with. So, you know, we don't see each other and, you know, just You're perfect on the pauses and everything. I'm not stepping on you. You're not stepping on me. It's it's been very pleasurable talking to you.

Cutter 50:34
Thank you. Well, that's a nice. You might be the first one to say that. Thank you.

Scott Benner 50:41
You're saying if we met somewhere else, and exactly talk to you,

Cutter 50:45
I'm that guy. I'm that guy. You're sitting in next booth at the restaurant. You're like, Oh, Jesus. So yeah,

Scott Benner 50:53
we're gonna have to move Honey, this guy's not gonna stop. That's hilarious. Do you live by yourself? I do. Okay, does anyone follow your Dexcom anyone in your life?

Cutter 51:05
I don't have a Dexcom. That's Libra. I have freestyle. I use a freestyle sensor, I still inject and use the Frezza. But my physician follows all that stuff. I don't have any. I don't have a tandem person, like a mate or a friend that follows that stuff. I'm sure I could share that with any of my friends. It's just not something that I have ever done.

Scott Benner 51:34
I don't know how libre works. So I'm not certain that you could or you couldn't, but I was just trying to get at what it's like to live alone with diabetes. Is it frightening? Ever.

Cutter 51:48
It's not frightening. It's weird. I have had some super lows, were getting to the fridge. And any t one D I think will have had this experience, sadly, or I should say anybody my age that's older. Getting from the bedroom, to the refrigerator that might be 1520 feet away, when you're unable to walk is it can be a bit scary. And that has been so that's been a nightmare at a few times, and again, dramatic when I say nightmare, but it's pretty scary. When you're, you know, six feet away from the fridge and you don't know if you can make it that's a little bit scary. Yeah. And there's no one else there. Nope. And you're crawling on your belly. You know, I don't say that. For pity. I'm just saying it's a reality. And it doesn't happen often. That's a very, very, it's only happened to me once to tell you the honest truth. But it was it was and then when you do grab the bottle of whatever you have in your fridge trying to get it unscrewed and into your mouth. So 80% of it goes on the floor as opposed to into your body that gets weird.

Scott Benner 53:04
Yeah, yeah, I can't imagine actually. Has it ever been an issue for you at your job?

Cutter 53:14
One time I do. One time, I did pass out at a job that I was working at. Oh, and I'll give you a good one. I when I was 18 years old, I moved out to California. And I wanted to work at Disney. And I went there to try to become a character now. This is great. It's hilarious. In hindsight, I got super low so low that I knew I needed to treat it. So I got up and I went to look for a Coke machine. And next thing I knew I woke up on my back. And I'm not kidding you. Snow White and three, the dwarves in costume are leaning over me. So when my eyes and an EMT was there putting sugar into me, but so when I opened my eyes, the first thing I saw was Snow White and three doors. And it it's one of the funniest stories that I have. Just yeah, it was crazy.

Scott Benner 54:14
Well, they could have just kept you a little low and major goofy, you would have been absolutely 52 blood sugar and Sam cutter out there. He's gonna be perfect. That's, that's crazy. i Oh, my gosh, I have to ask you. So because you're coming from a different perspective. You know? How do I mean this? I find very open to I'm trying to figure it out. I find very often that people have had diabetes for a very long time, had different expectations and goals. And now that things have I mean, now that technology has improved, it's hard to to shift. And so like I'm not I mean, obviously not judging you about like having frequent low But I wonder why they happen? And if you're not able to do something to stop them, and and or have you tried and it hasn't worked? And I mean, there's a lot in there, but somewhere No, no,

Cutter 55:13
there's a lot in there. And it is an incredibly valid question. And I will give you the honest truth. The reason that I have had so many lows, and the reason that they've been bad is that I'm an idiot. And I will often get, again, I use these words like often I'm telling you three stories that sound dramatic, but keep in mind that's over 51 No, yeah, I understand, you know. But when I have had a major incident like that, it's due to ill preparation. Now, I always have food on me, always. I don't care if I'm walking across the street, I'll have something on me just in case that took a long time to get there. I always assumed that food was two minutes away. Okay. And so I have learned to always carry sugar. When I was a kid, we carried sugar cubes, but I'll carry glucose tablets, or whatever I have show now I always have something with me.

Scott Benner 56:18
Jenny told me yesterday. She used to have reasons in our pockets when she was like, yeah. So you're, you're, you know, so you're telling a bigger story and trying to you know, it's spread out over decades? Do you think that it was experience that made you carry stuff with you nowadays? Or was it maturity? Like, were you resistant to like, did it did it? And you don't seem like the kind of person who would just be like, I'm not carrying this? Because I don't want to look like I have type one. I don't see you as being?

Cutter 56:49
Yeah, right now, it was just absent mindedness. Again, I don't think of myself as a tea one day. The first thought when I think about myself is not I'm a diabetic, because it's, it's just part of my life. So unfortunately, in the past, when I was younger, again, using that example, I always thought food would be two minutes away. And now I've just learned, you know, you wake up on the sidewalk a couple of times, and you're like, Well, maybe it's time to start carrying a power bar. So it just makes life a little bit easier.

Scott Benner 57:24
What are your agency goals right now? Like, what do you shoot for? Well,

Cutter 57:29
I mean, obviously, we all want to be at five, five. But that's not happening right now. And currently at about seven now, I spent a lot of my life a lot higher than that. So what I'm looking to get out to now would be six, and that would be perfect for me. But I know my limitations. And I think I would be okay with six, five,

Scott Benner 57:53
what do you think stops it from being a six?

Cutter 57:58
The the lifetime of non discipline, really, I am late to the game in treating it seriously when you are. And when I say seriously, I have always been aware of the effects. I'm not saying that. I didn't think it mattered. What I mean is when you're young, you're going to live forever, and you're Superman. And it's only when you get a little bit older. And you look back, and you see how bad your dad was the last nine years of your life, that you realize you're mortal. And you realize, oh, I need to pick up my game. Yeah, so that's where it is, for me

Scott Benner 58:37
sort of like no one bag of potato chips feels like it's going to be the end of your health. It's just, it's the culmination and you don't keep track of the culminating happening. Okay, so I guess this is I've been wondering this since we started talking really like how did you find me? Do you listen to the show?

Cutter 58:56
I do. Listen to the show and tell you quite frankly, one of my very good, lifelong diabetic friends was a guest on your show.

Scott Benner 59:07
Oh, okay. Are you able to say who it is?

Cutter 59:11
I can say i His name is Thomas Casey. And Tom is a really good friend of mine. And he was I think he recorded with us some time. Maybe this summer? I'm not sure.

Scott Benner 59:25
Oh, so it's possible. His episodes not even up yet.

Cutter 59:29
I don't think it has aired yet. Oh, no kidding. So

Scott Benner 59:31
he told you about the show. And because it's interesting that, well, it's not I guess I'm wrong. I'm about to say something about my own podcasts. It's not right. But I think the show I think of the show is management related in my mind, but I think it's as much if not more community oriented than that, honestly. So you, I'm guessing enjoy hearing the stories from people more than you would say go back and listen to that. The Pro Tip episodes about management. Is that right?

Cutter 1:00:02
Exactly and show you're aware, too. I had heard the podcast before I had heard it. I don't know, I'd probably listened to three or four episodes. And because I had mentioned it to him, and that's when he told me that he was going to be a guest. Okay, I was not a religious listener. But after he talked to me about it, that was when I submitted you the email just saying I had a pretty unique experience involving law enforcement. Yeah,

Scott Benner 1:00:31
no, you certainly did. I mean, your experience in general is unique. It's not. I mean, if you don't tell the story about law enforcement, to be honest with you, I still think you're, you're the right person to be on this on this podcast, for certain, okay, well, that's interesting. So if I told you that I think there are 20 episodes of this podcast that if you listen to your a one C would come into the sixes easily? Would you be willing to listen to it? Or does that feel odd to you? Does it feel odd to listen to a person who I don't have diabetes cutter, you know, and so like, would that rubbed you the wrong way? Oh, yeah,

Cutter 1:01:07
that would be terrible. Listening to something about how to get my a one C to six. Yeah, well, what are you doing? No, I mean, no, yeah, no, no, I know exactly what you're saying. Yeah, I will tell you that for me as a listener, and I'm certainly not speaking for everybody. I am still very intimidated by the science of tea one day, I am not good with it. And I never have been, I understand the basics. But when I'm listening to something that's presented in a very clinical way, I tune out quickly. The reason that I love your podcast is because oftentimes, I hear stories that I I associate with, it's just that when the tech part of it comes in, that's when I feel like a dummy. To tell you the truth. I know that's an off color word. But yeah, so if you if you have podcasts that are easy to understand, and don't threaten the listener with tech speak, that would work perfectly for me, but I understand I'm in the minority.

Scott Benner 1:02:12
Okay. So this is super interesting to me, because that's what that stuff is. I mean, so what you don't know about me, maybe, interestingly enough, but it's so interesting to me that the podcast is sort of I was having this conversation with somebody the other day, that it has so many episodes at this point, that there are almost podcasts within the podcast like there are, you know what I mean, like their series and ideas, like, there's a way for you to listen to certain episodes, and think that I'm some sort of a insulin genius. And there's a way for you to listen to certain episodes, and think this guy is just having, he's just conversational, just talking to people. And if you don't intersect with all that, you wouldn't really know. So let me give you a tiny bit of background. I'm bad at math. When my daughter was given, you know, her diagnosis excuse me, I was a stay at home dad. And I was fairly certain I was going to kill her. And in the first couple of years, I was probably well on my way to accomplishing that. Her a once he was like, you know, in the mid eights. I had no idea what I was doing. There was no good technology, it was using a meter and some needles, basically. And I began to write a blog in 2007. Maybe, yeah, I know about this, okay. And so, and then I started building ideas. And one day, I just was like, Well, I have a system here. Like it's not, I haven't quantified it at all. But I know there are steps that I take every day. And they lead to these outcomes as I got her, her eight to a seven or seven to a six or six into the fives, like you know. And then one day, I was just like, I started writing about them, kind of to clarify them for myself, I think. And then the podcast began in 2015. And by 2019, we were doing these things called Pro Tip episodes, where me and my friend Jenny, who's had diabetes, like I said, earlier for 33 years, she helped me take all the the ideas that I had kind of figured my way through over the years. And I said to her, I'm like, I want to put each idea into an episode. And I chose her because she's just, she thinks about diabetes the way I do like the management of it the way I do, but she comes from a different perspective. She's got type one for decades. She's a nutritionist. She's a diabetes nurse practitioner, like you know, she has a she has that kind of technical vibe, but nothing about the way she talks about it as technical and I have no ability to speak about it technically, like cutter seriously. I make the same. I don't know what post prayer. I can't even say that word. Post pred President pranjal like whatever that word is that your endocrinology just throws at you about your blood sugar's after you've eaten or whatever the hell it means. I can't say it. I couldn't define it for you. And my daughter is a one sees between five, two and six, two for eight years.

Cutter 1:05:11
Wait. So you mean the terms that my endo gives me that I nod my head like I know what she's saying. Just

Scott Benner 1:05:17
like when they say the glycemic load and the glycemic index of your food is very important. And you're like, oh, yeah, of course it is. Yeah. Lady 30 years ago, I wanted to be dopey. All right, I guess I'm not following you. So I would tell you, that if you listen to those prototype episodes, and your agency doesn't end up in the sixes, based on just the conversation I'm having with you today, I'd be surprised by that. And I bet Oh, geez, that's great. I bet you would literally happen in three months.

Cutter 1:05:52
Let me tell you, I saw the clip or the the episode. I don't know what when your daughter had her low. And boy, that was you had a video where you treated her at a really, really, really young age when she was low, correct? Oh, my gosh, that's from a long time ago. Yeah. Well, and let me tell you something, I want to thank you for that in a very odd way. Because my parents got divorced when I was six. And so they were still married, but my dad worked during the day. And I had never thought about what a challenge that must have been on my mom, when I was a little kid, and I was your daughter's age. And that made me give her a call and just say, hey, thank you. I always took it for granted. So being that you had to deal with that, that says a lot. And I'm not praising you to praise you. I'm saying it says a lot about you. And my mom and any parent out there that has to deal with something like that with how do you deal with that with a three year old, it must just tear your heart out show thank you for putting in that time, it really

Scott Benner 1:07:02
does rip at you. I appreciate that. You know, it's funny, I don't even know where to find that video at. But hold on one second. So dry in here. So what had happened was she had had a seizure, and from a low blood sugar. And one day, we had a video camera set up for something completely different. And she just started talking about the seizure. And I just let her go. And her descriptions were really interesting. My eyes saw colors, because she was really little. I felt like a monster. I think that's because she was grunting. She couldn't speak any more. It was just interesting to hear her pick through what she could make sense of from that experience. And like I said, Honestly, there was just a video camera there. And she started talking about it. I just pushed record. It was a thank

Cutter 1:07:58
you. Thank you for that. Because I have to honestly tell you all I was thinking and in the video that I watched I don't know if it's the same one is are you trying to you offering her pancakes or something? Oh,

Scott Benner 1:08:09
maybe that's a different one.

Cutter 1:08:11
I think it's a different one because she's actually having the low and you are trying to treat her with it. Treat her through it, I should say. And I think you might have gotten you tried to get her to eat pancakes or maple syrup something too. And she didn't want any part of anything like a diabetic often gets when they're super low. And you were really, really, really super great about it. And then you did get her through and you're doing I think it might if my memory is correct, you were doing a blood while you were feeding her. And it was a you know, it's a juggling act for moms and dads. Yeah,

Scott Benner 1:08:50
I do remember that the trying to like get her to eat and test your blood sugar at the same time. Because you're testing your blood, you're just trying to like back then without all the technology, you're just looking for any indication that this is either holding tight, or moving in your direction or going the wrong way and needing and you need more. Because even in those panic situations, I was still trying to be cognizant of not over correcting her. Because it's so hard to even fathom starting over again. And just you know, like turning this low into a high and then this is all going to happen again. So you're trying not to let her die. And you're trying not to make her blood sugar 300 At the same time with note I mean, the meter I used to have. I mean, it's like I came out of a bubblegum machine. You don't I mean it's probably crap. You know? And, and you're just like, oh, you know, you whatever the number is, you test you're like, you know 48 The next one like three seconds like you know, you try so hard to wait a couple of minutes because the anxiety is crazy. And then you test again you like 50 to like Oh, is that okay, good. You know like now I'll wait for a minute That's before I check again like you, you, you know, you check a blood sugar five, six times the middle of a low just to make sure I mean, I don't know like, I haven't tried the inhalable insulin. But I'll tell you right now, that CGM for my money is the best thing that's ever happened. So.

Cutter 1:10:15
And yeah, and it's and just to backtrack a little bit when I was a kid, you talked about all the advances we've made over the years, when I, I was probably I don't know, I was probably 12 or something. And I said to my dad, I had just come from diabetic summer camp. And I said, Oh, this is amazing technology being what it is, I think it was 1980. And I don't mean, they're probably going to find a cure for this in the next 10 years. And my dad just kind of grinned at me. And I'm like, What's up? And he said that they're never, they're never going to find a cure for this. And I'm like, What are you talking about? And I'm thinking, He's crazy. He doesn't know anything. And he said, Well, they make too much money treating it. And at the time, I thought he was crazy and insane. But now, many, many, many years later, and I don't want to get into a political. That's not what I'm saying. There's what I'm saying is now as an adult, I kind of understand that.

Scott Benner 1:11:15
The idea that he's just that, that feeling of why would anybody make their revenue stream go away?

Cutter 1:11:22
Right, exactly. And I love it. I love it. But I'm fortunate enough that I have access to this stuff. Not everybody does. Yeah, you know. And so that's all I mean, to say about that, there's no, I don't think we'll ever see a cure in my time. I just don't. So

Scott Benner 1:11:43
I have two thoughts about that. My first one is the people who are scientists that are I'm imagining working on curing all kinds of things. They're not in the same revenue stream as the person who's selling you, you know, the, the supplies, and so that makes me feel good. I also think that it's impossible to keep a conspiracy quiet in a world that's big. So if somebody has the, you know, as the formula folded up in their pocket and doesn't want to share it with us, that would surprise me too. But, you know, to your point, I don't think a company that's making needles is going to suddenly open up an arm to try to like, cure diabetes, either, you know what I mean? And maybe they will, maybe I'll be surprised. The bigger issue to me is, is that, you know, as a species, as humans, I don't think we've really cured very much. You know, like, it's not like curing things is super simple to do. And I do think that people's idea of a cure is, I take a pill or a shot, and then I don't have diabetes anymore. And our technology and sciences is nowhere near that you don't I mean, like, so if they come up with glucose sensing technology, or, you know, I don't know if they think they can one day insert a packet of cells inside of you that don't need immunosuppressant drugs, like, cool, like, let me say it, you know what I mean, but I, I keep it very simple. I live and think, like a cure could never happen. But I am always very hopeful about it. Like, so I don't lose my hope. But I try to stay. I mean, what I consider to be common sense reasonable about the Herculean effort it would take to actually cure a disease.

Cutter 1:13:28
And you know, what, that's thank you for making that statement. Because that you've just turned me. I know, I sounded like Mel Gibson and conspiracy theory at the top there. And I'm not that guy. But your, your that analogy that you just made is actually pretty great. And thank you for making that because you're right. It's not like they've cured 400 Other diseases, and they're just holding back on T one. D. You are so right about that. We haven't been able to sure we cared. We cured polio, because that was right now thing that was happening, I get that, but we don't have the technology yet to cure all of these things. So thank you, you've put that in a great new perspective for him.

Scott Benner 1:14:14
No, I appreciate it. It's just always how I've kind of like wrap my head around it. Here's a short list just from a Google search. The Google Search diseases cured by humans comes up and says successfully eradicated human diseases smallpox. Wow. Pollio my latest caused by wild polio virus types two and three. So good luck. I don't know what that is. Polio. dracoon Cooley, Asus yaws, malaria. What the heck is this one? D R. I mean, listen, this got maybe nothing to do with what we're talking about. But if we don't try to figure out what DRACUNCULIAS is, is Dragway

Cutter 1:15:02
Why are you so dumb? Everybody knows that that's your manager. And

Scott Benner 1:15:05
so even the way they break it down and make it easier is no help. So the word, the word, okay? Let's just say whatever drag cute. Let's call it Dracula. Dracula. Okay. Also called guinea worm disease is a parasite infection by the guinea worm, Dracula. mendini says, Oh my God, a person becomes infected from drinking water that contains water fleas infected with guinea worm larva. And ingested, okay, this is one of the things that we've eradicated. Like, they didn't, you know, smallpox, they didn't go into your body. And because here's the problem, right? You have a two step issue you think of, and most people think top line, my pancreas isn't making insulin, that's my problem. Your problem is that your auto immune system killed, you know, or shut down, your pancreas didn't kill it, it's still doing a lot of things, actually, it's just not making insulin. And can you a, turn that production back on, and b Stop your body from just re attacking it again, like, these are not like, oh, there's a virus and we can make a, you know, a vaccine to stop it from making you sick, or, you know, we have smallpox here. And, and we know how to like, it's just, it's not the same thing. And so, I don't know. And I, if you ask me, like, just if you put me in a bar, and we had $50, and you put it in the middle of the bar, and you're like, there's a right answer to this? Are they gonna cure diabetes or not? I bet no, you know, like, like, if you put me in that position, if he asked me to, you know, give up $50, to feel hopeful for my whole life, I could do that, too. It's just a very, it's a very interesting. What's interesting is what we consider a cure, versus what the reasonable possibility is to do that with current technology. And that's, you know, there's a gentleman that was on here this year, whose company is trying to make a drug. Just a vaccine for hand Foot Mouth Disease, you know, hand Foot Mouth, it's almost like my daughter had this right before she was diagnosed. So it's a very common, they commonly call it hand Foot Mouth. And you get these little spots all over you, you know, had a rash on your hands and feet and mouth. But for some reason, a lot of people are diagnosed with diabetes afterwards. So we've always just kind of simply thought of it is my daughter got this, this thing? And then her body got confused. And, you know, attacked her pancreas instead of the hand Foot Mouth. And for some reason, I can't think Hold on a second. Yeah, okay. For for the life of me, oh, God, this word that I know. So well just thought in my head. It's called it's Coxsackie virus. So this guy said, the guy said, Look, if so many people's diagnosis precedes Coxsackie virus, what if we could make a vaccine for coxsackievirus with fewer people got Coxsackie then stands to reason that fewer people might develop type one diabetes. Like that's the kind of like thinking that I'm encouraged by, you know,

Cutter 1:18:28
oh, and that's what a that's a scientific guy. That's just thought. I mean, that's, that's wonderful. That yeah, and I think, again, I'm regretting everything that I said earlier. I didn't, I don't ever mean it as a big conspiracy to hurt people. I don't mean it that way. I just mean, from a profit center, it certainly doesn't hurt you to have this thing to treat. But when when I hear about that, all of the scientific people that are I think they would all love to who doesn't want to help people? You know, that's what I think it is. Yeah,

Scott Benner 1:19:07
there's a bigger thing and they're like, there's some people who are researchers and they just wanted research for the rest of their life. They're not you know, there's, there's all kinds of aspects of this conversation that you can't have in just an hour honestly. But I mean, I take your point, it's not wrong. If I make fingered fingernail cutters, I'm not going to want to come up with a shot that makes people's fingernail stop growing, you know, like, someone else might want to do that. But that's not going to be my main focus and, and there's I mean, listen, there's nothing wrong with that like I would never you know, if you think about insulin pumps, glucose sensing technology, better insulin, you know, G sharper needles, you don't I mean, needles that can be disposed of all these things make people's lives better if they use insulin, so I'm glad it exists. I you know, sometimes you hear people say like, oh, that company makes too much money. And I was like, Look, you may be right, that's a different conversation. I'm a Happy they exist, whatever keeps them getting up and going to work in the morning is good with me. You know what I mean? Like I just want, I want to see what they come up with next. I'm a bit after this

Cutter 1:20:10
inhalable insulin. I honestly believe in magic now. It's crazy.

Scott Benner 1:20:15
No kidding. I can't I can't agree with you enough. Like, we're just at. I don't know how to put it like it feels like we're just at the precipice of all this, like, the diabetes is still a very new type one. diabetes is still a very new thing. I mean, honestly, Qatar, you're born in 71. No, 68 us me 68. The math on this just vaguely if you were born in 1920, you probably dead. Right? Yeah, you don't make it at all, because there's no insulin. So that's only 100 years ago now. It like 100. I'm 100%. Right. So 2020 wants the 100 year anniversary? Yeah, you're right. Am I right? Okay. Yeah. So, listen, 105 years ago, people were born, they develop type one diabetes, and then they were gone. And I think the Egyptians used to call it they had some phrase that meant that you urinated yourself to death. That's that. That's, there's historians who think that that was type one diabetes, the idea that people used to urinate themselves to death, because that's the only cause and effect they could see back then. Anyway. It doesn't help. They get help, though.

Cutter 1:21:22
Did they get help from the UFOs? No, the

Scott Benner 1:21:24
UFOs did not help them. They just kept building the pyramids and they didn't even have Asterix? Yeah, I mean, you're there and you're flying saucer, and you can't just be a little health. I mean, you just use the laser gun. They gave Dr. Spock right. And no bones. It was bones Damnit, I ruined my own analogy. So good. Yeah, you just wave it over top of them make their pancreas work again. But no, no, no, no, they were busy building a pyramid? I'll tell you right now, I could spend the rest of my life being amazed that I mean, how would a human being build cut that stone? Even? You know what I mean? How do you cut the stone? How do you move it? How do you stack it? How do you just, you know, people are? I mean, maybe that's the message really is that if, if human beings can without tools that we would think of as anywhere near modern, could fashion a stone into a certain shape and stack it up into a pyramid, maybe we can figure out how to cure disease one day, I just think it's going to take more time than, you know, a person in this moment would care to think.

Cutter 1:22:31
Absolutely. And I know that we're past the hour, but let me just say that, for me, as somebody that's and thank you very much. Hold on, let me give you a beat. For me, I just want to wrap it up with saying thank you very much for giving me this platform to talk to you, I never get the chance to talk about this stuff. And it's really pretty wonderful. And I have, I have always said, from my perspective, I won the lottery, when diagnosed. And I always say to, if you're going to pick a disease to have to live with, I don't know, if there's a better one to pick than to one day, the problems that can happen to you are pretty horrendous. I saw my dad go through a really, really, really rough nine years. But now we know that these things happen, and we can avoid them from happening and live completely normal, live show as far as getting a disease goes, I think that T one D from my perspective is is the number one is the one to get that if you're going to get anything.

Scott Benner 1:23:46
It's the best time in human history to have type one diabetes, which awesome not saying it's not saying a whole lot, but but it really isn't. I appreciate your perspective, I'll tell you, I'll let you go cutter that I would rather talk to you, or someone like you than any person who I don't know, makes their living talking about diabetes, or, you know, work somewhere. I don't know, I just think there's more value in in letting you just unfold and unpack your story, especially as you've just kind of acknowledged that it's not something that it's not something where there are a lot of places to do something like that. And you have specific thoughts and perspectives that are valuable for other people living with type one to hear. I think they're valuable for people who need insulin to hear honestly, but but but that is maybe one of the points of pride I have about the podcast is not that it just that exists but that it reaches so far and wide and allows your story from wherever you're sitting right now to be something that anyone can access. You know, so I really appreciate you taking the time to come on and do all this

Cutter 1:25:00
Oh no, I appreciate being able to do it. And thank you so, so much for that. And if you're ever bored, or whatever, do not hesitate to send an email or whatever, thank you,

Scott Benner 1:25:13
hey, if you want to be on again, book now, and I can have you on seven months from my schedule, and I'm just kidding, my schedule is a mess. I just had somebody say to me, I just took an A, I mean, it's December now 2021. And I just had somebody book in September of 2022. I think that was like the next availability I had. So

Cutter 1:25:34
I had to move I was originally scheduled with you in July. And I had to cancel it due to a work obligation. And the next available window was today. So yeah, it's amazing that you have the amount of let me ask you, I don't want to bore you. But this has become such a big deal for you. I imagine, do you you must have times where you're like, Oh, Jesus, I don't want to do another one. Well, how do you deal with that

Scott Benner 1:26:04
I like to talk. And I find people very interesting. So the recordings are not, I've never had an issue of making a recording, even like I've gotten on with people who I don't like I wouldn't personally get on with, and I still have a great time talking to them. There are moments when the editing becomes arduous. That's the part that sometimes can like, get me when people are like, well pay somebody to do the editing? Well, first of all, that's easy for you to say it's expensive. And you know, but also, I think there's in this like an aesthetic that I have, like I I think part of the reason why the podcast works is because of the way I envisioned it, I don't know that I could teach that to someone else. So there are times when I will say to give you an idea that the podcast comes out four times a week. So I record at least three times a week. And then in my off moments, like so I record your episode today, your episode will go onto a hard drive, it'll be backed up in redundancy about 1000 times so I can't lose it. And then I'm going to go eat breakfast or lunch or whatever time it is. And then I'll come back up here today. And I will listen through as many episodes as I can get through today taking out noise and some people click their tongues after every sentence like stuff like that, that I find irritating that I wouldn't want to listen to I clean it up for sound, I don't clean them up for content. I don't think I've ever chopped anything out of one of these episodes, you know, with the, you know, every once in a while somebody will say something. And they'll like, wow, that's too personal. Don't put that in there. But it's not like they agree justly say something crazy. And I'm like, Oh, I don't want to have this person be known as you know, you don't I mean, like, no one's ever come out for the Nazi Party in the middle of it. And then I've been like, no, no, no, we'll just chop that part out like that stuff. Like that doesn't happen is what I'm saying. And then people that

Cutter 1:27:59
don't know, that have never edited anything in audio. That's a real simple process that only takes about 15 seconds, right? Oh,

Scott Benner 1:28:08
sure. No, yeah. So it takes longer to edit the show than it does to record it. Yeah. And then I have to put it aside again, until I'm ready to put it up. So I basically I have a, I probably have about 60, raw edited files, I try to have 10 that are edited down for like sound. And then I have to come back every week and put in the ads and the bumpers and all of that into the edited ones, then I have to move them online, set them up so that when you open up your app, they have a title and that stuff all it's just it's painful, then I have to support it with social media. And, and the whole time, I'm still making more. So while I'm talking to you, I'm editing shows that I recorded six months ago. And it's I don't dislike any of it, I really do it to. I mean, I can't imagine. I mean, think about it, like I make a living. I help people, and I enjoy this. There.

Cutter 1:29:11
And that's the key right there is that you enjoy it. Because if you know it's an old saying and it sounds like a cliche, but if you love what you're doing, it's not work. And it what you were saying about hiring an editor and editor doesn't have the feel for the pieces that you do because it's a personal thing for you show I applaud you for that. That's that's why they come out good.

Scott Benner 1:29:37
I appreciate that. In my mind. Each episode is a narrative. And when you pile them all together into the podcast, there's a narrative there as well. You know, so I think of however many episodes there are now I think, I think maybe 594 went up today, like number 594 and And I think of the middle almost as an organism, honestly, I think the episodes are pieces of a bigger thing, and that you can enjoy them ala carte. But if you listen to all of them, I mean, I'll be honest with you, I think if somebody started listening to this podcast that number one and somehow listened to all through 594 of them, I think they're a one C is in the fives. I think their stress is lower. I think the amount of time they think about diabetes goes down. And I think their mental health around it would be calm. And or at least you'd have that possibility, at the very least. And so I'm, that's my goal. And like my big, overarching goal, I'm proud of it.

Cutter 1:30:44
Well, I'll tell you, where can I find you social media wise,

Scott Benner 1:30:49
there is a private Facebook group that has 18,000 listeners in it. It's called Juicebox. Podcast, type one diabetes, that's where you'll find me mostly, there's a public group where I just post new episodes. And I do kind of the same thing on Instagram, I'm not very active there. Although there's a fairly big following for the podcast on Instagram, but I just kind of, I don't know, I pop in once a while, you're more likely to see a picture of like a flower that I see outside then something about diabetes. But yeah, I think that Facebook group is the place to be I'm astonished by how on Facebook, my Facebook group is. And I think that has something to do with the fact that it is mostly stocked with people who listen to the podcast, you know, you eat grows, and people come in from the outside who are used to being, you know, not kind to people, or judgmental or whatever. And those people either see that this place is not for them and leave. Or I've seen a lot of people start off kind of gruff and end up being really important parts of the of the group. So I think everybody, I think everybody deserves the chance to have a conversation with another person living the life like them. And maybe just not everybody's ready to have it right away. So it takes it takes some compassion and patience on the side of people who are already in that place to help other people get there. And I don't know, like, I can't believe I'm saying that I think my Facebook page is an accomplishment, but it actually I do. So there

Cutter 1:32:24
you go. Listen, if you have 18,000 people going there, that's not your mom and your best friend from high school. You know what I mean? That's, that's reaching people. So you're doing a great job. And in closing, I would just say, I think maybe, and if you already have I apologize, maybe if you put up a posting there and I'm certainly going to go and join right after this. If you have those 10 videos or I'm sorry, podcasts that you recommend to lower your a one see, I would certainly love reading something like that.

Scott Benner 1:32:57
It's all there cutter, don't worry. They're all great lists. And there is a wonderful woman named Isabel who helps me with the podcast in Facebook, and she's got lists and graphics and she's, she's done way more online with my information than I ever had the time to. So you'll find it when you get there. It's called Juicebox Podcast type one diabetes will answer a couple of questions. Just to prove you're a real person, it'll let you throw his Rawsome

Cutter 1:33:24
and to anybody out there that is a T one d that is afraid of coming on this show because of your lack of education about diabeetus like I often feel I can tell you that was my biggest hurdle coming into this episode today and it went away after about 30 seconds. So don't be afraid here it's a good time

Scott Benner 1:33:47
I appreciate that man very much

Cutter 1:33:48
I hope you have a great day. You too you are fantastic sir back at you

Scott Benner 1:34:01
I just the door cutter and I hope you enjoyed him as well. Thanks so much for coming on the show cutter and sharing your story with us. Thanks also to Omni pod makers the Omni pod dash and the Omni pod five head over to Omni pod.com forward slash juice box you use the links in the show notes were the ones at juicebox podcast.com. Right now go go go and don't forget that you deserve an accurate blood glucose meter contour next one.com forward slash juice box it's the easiest decision you're gonna make today is to get the Contour Next One while you're out on that internet T one D exchange.org forward slash juice box take the survey fewer than 10 minutes help me out help people with type one diabetes

if you're enjoying the podcast please please please subscribe or follow in a podcast app like Amazon music, Apple podcasts, Spotify you know audio apps go into it, search the show up and then hit followers subs Right, depending on what the options are in the app, you're listening, there's a ton of other podcast apps like say you're like one of those people, it's like, but Scott, I listened in overcast, it's fine with me. Listen wherever you want. By the way, podcast app should be free, you shouldn't have to pay for them. But following us subscribing, that's the key to supporting the show. And then if you want to go a little farther, tell someone else about it. That's really how the show grows. And speaking about growing, here's a little something you might not know. You want to know something cool. I'm gonna tell you something cool. You want to one second, we put the number so you can say it. And then we're going to look up the word duper. Okay, so when I tell you to share the show with somebody, if you're enjoying it, here's why. Because it grows exponentially when that happens. And if you need proof, here's some proof. If 2022 continues on at the pace, it's that there will be more downloads, restream streaming and people get confused. Sometimes, whether you download the show into your app, or if you stream it through the app, it's the same thing. A Listen, let's call it there will be more listens inside of the calendar year 2022. Then the show had in its complete history prior to 2022. So be clear about what I'm saying. Because of the way you guys listen, and share 2022 should have more lessons than 2015 1617 1819 20 and 21 combined this year, stronger than the previous seven years combined. And make no mistake why that is, it's because you listen, you subscribe, and you share for that. You have my utmost gratitude. And thanks, I really do appreciate it. Now, let's figure out about doober. Now turns out duper is a real word, but it says a person who deceives or trick someone. So that's not what we mean. Now we get down to superduper at Webster's, okay, definition of superduper of the greatest excellence, size, effectiveness, or impressiveness. Now here's the thing. does no one know what superduper means? Does it have to be? I mean, I was just kidding earlier about it being a technical term, but Oh, real quick before I go, let's find out how the gimbal shattered here. How does the dictionary say superduper? Ready? Thank you. Hold on. They do. It's it sounds like it's a super duper budget. Why is it doing that? Super duper super duper duper. It's still saying super duper high, Hans. Oh God, if I do this for five more minutes, I'm gonna call this episode super duper super duper. That's better. The Merriam Webster website did a good job with it that the other one is Google. Listen to what Google says. Superduper that time it got it right. Interesting. Okay, hold on. So Google. Out there did it again super duper. And then Merriam Webster means subscribe. I'm not subscribing. it. Stop it. Not subscribing after I just asked you guys to subscribe to the podcast. I'm like, I ain't subscribing it crap. Hold on a second. This is Webster's super duper. Don't know which one do you like better? I wonder if there's other ones. Here's the Cambridge dictionary. I think it'd be British. Super duper. Oh, wait, that was the US version. We just have a UK version. Superduper superduper let's do that one again. Superduper This is interesting. Why did they all have your Collins dictionary? Super duper. Well, that sounds like a bad guy in like a like a Marvel movie. Super duper. What the superduper mean, your dictionary.com Nope. Superduper This podcast is over. By the way you can stop whenever you want. Super duper. That was Wiktionary which I didn't know was a thing. But I'm not stopping now. Idioms the Free Dictionary. Now Oh, spend some money idioms. Get yourself a pronunciation. Macmillan Dictionary. You guys know dictionaries used to be books right? Here we go. Superduper that was upbeat. One more time for that one. Superduper Yeah, that was super duper McMillan. I'm going to the second page results because I'm not done yet.

The Urban Dictionary, you know, it means something totally dirty and nasty in the urban dictionary. I know it doesn't. But the description is 30 Okay, hold on a second. Yeah, there's no there's no little little talky button. hotkey button Toki button. It's actually what came up in my head. The source.com. Want to hear some synonyms for superduper? We're way off the track by now but let's not stop. Attractive. Valuable. Wonderful. commendable. Excellent, exquisite, great laudable praiseworthy. Unreal. Wow, look at that super duper all this because I like the Contour. Next One blood glucose meter. And by the way, people at contour this is basically an ad right now, so, I mean, you're welcome. What else here? dictionary.reverso.net That can't be a real thing. What is that? Oh, I see that you could, um, like, swap it to different languages. Oh, that's interesting.

I don't know if I have much use for that. But that's okay. Hold on. Is there something online that can just talk like, let's see make my words audio? Well, that's the worst Google ever but speechify it's an ad so careful. So if I let's see. Says paste. Um, okay. Oh, what do I usually say at the end of the episode. Thanks so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. Alright. Thanks so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. We should make this thing first before we go.

On I was just saying Just saying. Whoa, hold on let's edit and try again. Okay. Super duper mother. There we go.

#723 Bold Beginnings: Long Acting Insulin

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Test your knowledge of episode 723

1. Why is recognizing the symptoms of type 1 diabetes important?

2. How is insulin therapy tailored to individual needs?

3. What is the significance of carbohydrate counting in diabetes management?

4. What role does technology play in managing diabetes?

5. How should diabetes be handled during sick days and stress?

6. What impact does physical activity have on blood sugar levels?

7. Why is building a support network important?

8. How can staying informed about advancements in diabetes research and treatments help?

#722 Jesse Was Here Part II

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#721 Cutting It Up

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