Scott Benner 10/22/25 Scott Benner 10/22/25

#1659 Pressure Makes Diamonds

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Chapman, a 29-year-old pediatric nurse from Charlotte, NC, was diagnosed with type 1 diabetes in May 2024—ironically after serving as his hospital’s pediatric diabetes specialist and anesthesia intake nurse.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Welcome back, friends to another episode of The Juicebox podcast.

Chapman 0:15
Well, hi, my name is Chapman. I have been a type one diabetic since May 2024 I am a pediatric nurse in Charlotte, North Carolina, and I am excited to be here. If

Scott Benner 0:25
this is your first time listening to the Juicebox podcast and you'd like to hear more, download Apple podcasts or Spotify, really, any audio app at all, look for the Juicebox podcast and follow or subscribe. We put out new content every day that you'll enjoy. Want to learn more about your diabetes management. Go to Juicebox podcast.com. Up in the menu and look for bold Beginnings The Diabetes Pro Tip series and much more. This podcast is full of collections and series of information that will help you to live better with insulin. Nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan.

The episode you're about to listen to was sponsored by touched by type one. Go check them out right now on Facebook, Instagram, and of course, at touched by type one.org. Check out that Programs tab when you get to the website to see all the great things that they're doing for people living with type one diabetes, touched by type one.org. This episode of The Juicebox podcast is sponsored by the Omnipod five. And at my link, omnipod.com/juicebox you can get yourself a free, what'd I just say? A free Omnipod five starter kit, free. Get out of here. Go click on that link. Omnipod.com/juicebox check it out. Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox. Links in the show notes. Links at Juicebox podcast.com. I'm having an on body vibe alert. This episode of The Juicebox podcast is sponsored by ever since 365 the only one year wear CGM. That's one insertion and one CGM a year, one CGM one year, not every 10 or 14 days ever since cgm.com/juicebox

Chapman 2:30
Well, hi. My name is Chapman. I have been a type one diabetic since May 2024, I am a pediatric nurse in Charlotte, North Carolina, and I am excited to be here, glad to talk about it.

Scott Benner 2:42
Oh man, thank you for coming. I appreciate it for sure. What's your specialty in nursing

Chapman 2:46
pediatrics? So I did general pediatrics for five years, and now I work with anesthesia for pediatric surgery cases,

Scott Benner 2:53
really? Yeah, are kids just hilarious coming out of anesthesia? Oh

Chapman 2:57
my gosh, it's one of the funniest things you can experience. Some kids are ready to fight somebody when they wake up, and some of them some of them are happy. Go lucky. It is, you never know what you're gonna get, but it's, it's funny and rewarding the same time,

Speaker 1 3:07
I came out of anesthesia one time, and my wife is just sitting there at the foot of the bed. The nurse is standing I don't know that my wife could have been more embarrassed, and I can as I feel like I'm coming to I can hear her apologizing, and I'm like, I wonder what happened. You know, turns out that whatever I said is what happened. And it's a much too friendly, family friendly podcast for me to tell you. Apparently it was horrifying. And then the nurse goes, like, my wife's apologizing in circles. And the nurse says, that's pretty common. And I was like, Oh, I wasn't even uncommon. That was upsetting to me, and there's no filter. Yeah, I said, What did I say? And my wife goes, later, I'll tell you later. So anyway, what does that mean? Like, I mean, you're not the anesthesiologist, though, right? So what's your job?

Chapman 3:53
So I work closely with the anesthesiologist. I work in what's called anesthesia screening, so any child that comes in to have any procedure, whether it's a MRI CT scan, major procedure, my job is to research the patient, you know, be in contact with the anesthesiologist. There's any special considerations for surgeries, be in contact with the family to kind of guide them through the process of surgery, let them know when they need to be here, what time they need to stop eating and drinking, and then kind of walk them through surgery day with them. So it's kind of a tangent point of the anesthesia team, because anesthesiologist isn't going to be the one to, you know, provide all this information to the family. It's, you know, it's a whole team process. So my team is just responsible for, you know, getting the patient to surgery day, and then anesthesiologist and the surgeon team all take it from there. So all minds behind the scenes of surgery.

Scott Benner 4:39
Yeah, you're not the guy that takes the tires off and puts them back on and bounces them your guy at the front that asks me what kind of car I got? No, and we figure out the sizes together, and I send you. I got you? Okay, exactly? Yeah, I ask a question that I always wonder about, because I'm older and I've had a couple of procedures, what's my real risk when I go night night of not waking back up again?

Chapman 4:59
I. Very slim. Very, very slim. Pretty much everything to do with anesthesia is all weight based. So they get your weight before your procedure, and they dose all the medication needed for anesthesia off of your weight. So you're not going to get any more than you need or any less that you need. It's going to be right, the exact amount that you need for your weight base dosing, and you're pretty much good from there. Obviously, there are some risks with anesthesia, but those are, like, the point 00, 1% things that the anesthesiologist needs to tell you about before a procedure. But other than that, pretty well fine tuned process, after years of research and trials,

Scott Benner 5:29
is it true that they don't really understand why we go to sleep? We just know what happens. Like, they don't understand the function of the medication, right? Like,

Chapman 5:36
what? Right? Like, the method of action? Yeah, that's a little bit outside my wheelhouse. I'm sure I learned something about it when I was a nurse. When I was in nursing school, but a little bit outside my wheelhouse now.

Scott Benner 5:45
Okay, so if I've been out a number of times, is there a risk in doing it another time or another time, or like or does the risk go up the more you do it?

Chapman 5:53
No, no, no, not at all. We have, we have some kids that need anesthesia, you know, three times a week for certain conditions and procedures. And it's like, three times a week, every week, for months at a time, and that's children. And so obviously you don't want to be understand under anesthesia too much, because the drugs are pretty, you know, pretty heavy. Yeah, they they flush out your system pretty quickly, long as you're well hydrated and everything. So it's not like it's going to be in your system for a very, very, very long time like some medicines

Scott Benner 6:17
are. I will say, as I get older, it the bounce back from. It takes a little longer. I'm a little more like, not goofy, but it's kind of tired Exactly, yeah, for a little longer. Okay, all right. Well, I appreciate you telling me about that. So last May, so June, July, August, year, 16 months ago. Yeah, is that when you realize something was going on? Or did you realize sooner than that? And it took a while to get to the diagnosis?

Chapman 6:45
Yeah. So everything started happening in January of last year, symptom wise, but I didn't really think much of it until late April, when I was like, I should probably get checked out. Okay? It started in January just with some, you know, mild weight loss, you know, two, three pounds here and there. I was like, Oh, cool. I mean, I guess I'm not trying too hard. But he never, you never complained about losing a couple pounds. It just kept going and going and going. And I, for some reason, didn't cross my my mind to think about that. And then all the, all the peeing, started peeing all, all the time, all the time. And my wife was, you know, seven months pregnant at the time, and I'm getting up the middle of night more than she was. Kind of straw that broke camel's back was I had some paresthesia, so numbness and tingling in my hands, my feet, yeah. And that was kind of like, Oh, dang, this. This is never a good sign. I should probably go get checked out. Being a nurse, you know, you you have all these symptoms, and you think of all the different things it could be, because you've seen all the different things when you're at the hospital. And so in my head, I was going to the worst of the worst. I was going to the big C, I was going to Ms. I was thinking of all the other things. So I was like, maybe, maybe it's just diabetes. Maybe I just have a random, you know, skinny guy, type two case. Didn't think much about type one. I was one of my doctor

Scott Benner 8:03
in January. How tall were you? How much did you weigh before the

Chapman 8:06
start of everything? I'm six 290 pounds. It's kind of my you're pretty lean, then pretty lean, yeah. And so I got down. I saw at diagnosis, I was six to 159 pounds. Wow, yeah. So I lost, um, around 40 pounds. 42 pounds

Scott Benner 8:24
at what weight did you think this is a problem

Chapman 8:26
when I started hitting the 160s mid 160s Why did it

Scott Benner 8:30
take that long? Listen, I'm five nine. Maybe, like, maybe, I think I'm at a pretty reasonable weight for my frame right now. And I think I was 169 this morning. So, I mean, even at 185 You weren't like, Hey, what's going on? Like, when was the last time you'd been 185

Chapman 8:49
oh, man, male college. I mean,

Scott Benner 8:52
I was, yeah. So what do you think I'm asking a hindsight question. But what do you think allows you to ignore that?

Chapman 8:58
I think my wife and I planned to have our first child, everything was kind of focused on that. It was a it was extremely high risk pregnancy. My wife was having some complications, and so my mind wasn't really on myself at the time. Yeah, I was having these symptoms, but looking back now, it wasn't really the forefront. Because, you know, I was worried about my wife and my unborn child, like, are we going to make it to, you know, due date? All these doctors tell us we're not going to make it there. That was at the forefront of my mind. And then all this started happening, and then I was diagnosed, and two days later, my son was born.

Scott Benner 9:29
Wow, what can I Is it too personal to ask what the high risk nature was of the pregnancy?

Chapman 9:33
No, yeah, no. My wife has multiple autoimmune conditions which automatically make her quote, unquote, a high risk pregnancy. And then she had, was called a short cervix. So the cervix, which pretty much holds the baby in, was too small to hold a baby in. And so they had to, you know, do cervical checks, you know, once or twice a week for, you know, five months, which is not pleasant for a wife, no or the service. You know, it's it. Yeah, it just, kind of just like a coin toss, like, like the cervix could hold it, could keep the baby in or, you know, you could be going to labor next week at 21

Scott Benner 10:07
weeks gestation. What autoimmune issues does your wife have?

Chapman 10:12
She has Hashimotos, thyroiditis and

Scott Benner 10:15
chagrins disease. Oh, and now you have type one. And do you have anything else

Chapman 10:18
that's that is my only, only medical condition. I've been a healthy guy my entire life. What about your extended family? My mom was diagnosed later on in life with Hashimotos in her 40s, okay, but other than that, I mean, my brother has some medical conditions, some called Hirsch bronze disease, basically a gastrointestinal disease. But other than that, everybody's pretty healthy.

Scott Benner 10:43
I'm sorry. You get diagnosed. The baby comes, the baby comes. You get diagnosed. What's the two day

Chapman 10:47
I get diagnosed? On May 8. Baby comes on May 11.

Scott Benner 10:54
What does diagnosed mean in a doctor's office, in an emergency room

Chapman 10:59
at the doctor's office? So everything I went through was all done outpatient. Thankfully, I wasn't in DKA. I didn't have to be on a drip or anything. This is kind of caught it relatively early. You know, my a 1c, was around nine, so it's not the crazy 14, 1516, you hear by some patients in DKA. It was around nine, which still is not, not great. I was able to kind of talk to some of my friends who are some of our pediatric diabetes educators inpatient so when I worked on the floor, I worked very closely with our diabetes education team and our endocrinologists. It was kind of my specialty. When I was working at the hospital, I was what's called, quote, unquote, the diabetes champion. So my job on my floor was to educate the staff and patients about diabetes education and things like that. So I worked really closely with that team, and one of them, her son is an endocrinologist, and he I called her right away. I'm like, Hey, anyone sees this? I can't believe this is happening. What do I do? And she said, let me make some calls. So she called her son, was able to get me appointment next day at the end, chronologist, which has a three, four month wait, I was I was able to get in next day, he pulled some labs, you know, a repeat, a, 1c, all the antibodies and everything, and that, that was May 8. So I got the official you are type one diagnosis, diagnosed on May 8. So hearing it from a doctor is what I consider diagnosed.

Scott Benner 12:14
Yeah, okay. How do you go to your wife, who's had a nine month, you know, battle with her, with her short cervix and say to her, Hey, by the way, I think I'm on the way the doctor here. Like, I think I have type one diabetes, and I know the baby's supposed to come any second. Like, was that difficult? It was extremely

Chapman 12:30
difficult. But my wife is extremely gracious and caring, and I don't know how you know she had the strength to help support me during that time as well, but she did so very thankful for her, but it was, it was kind of just the all hands on deck. I support you. You support me. We're doing this together. We got to figure it out, because we don't have any other

Scott Benner 12:46
choice. How's the birth of the baby? Like, are you on, like, injections at that point? Yeah.

Chapman 12:50
So I was MDI at that point. It was a stressful time because he came six weeks early as well. So, you know, we're freaking out. She's like, Oh my gosh, I'm just went to labor. We're not ready yet. We don't have, you know, the supplies. We don't have the room ready, all this stuff. I'm like, I was just diagnosed. I'm still figuring out how to put a Dexcom in and how to give myself shots, yeah, and trying to figure out my dosing, because, you know, they just kind of slap me with a generic Lantus dose and then a sliding scale. And, like, here, do this for this, and do that for that. I'm okay. Well, I have a child coming, and so during, you know, labor, I had just worked a full 13 hour shift to the hospital, I had to drive straight to the hospital to be with her, and then my sugars are in the 50s, and then nurses are having to bring me juices. It sounds like you're my wife. It was slightly embarrassing, but also thankful for medical people that understand.

Scott Benner 13:39
They're saying breathe and they're talking to you, not to her, yeah, yeah. I

Chapman 13:42
don't want to seem like that type of dad that's like, Oh, help me. I don't know what to do, but I was like, my sugar is 45 I need some

Scott Benner 13:48
juice. I'm low, and I don't know what I'm talking about. And I'm the diabetes person at my job, which is I'll ask you more about as soon as I tell you that. Due to a typo, while I was getting background in Hersh bronze disease, I learned that there's a psychotherapist named Hirsch Braun. The typo, right? He's a pleasant enough looking fellow. Just times like, wow, what did I mistype? I'll to go back and look later. Okay, so you, you get the diagnosis. It's simple. MDI set up, but the baby's coming quickly. You're still working. You got diagnosed and went to work.

Chapman 14:20
Yeah. I mean, as a nurse, you don't get much time off for paternity, let alone for kind of medicinal things, unless you take FMLA, which I didn't really have, couldn't really afford.

Scott Benner 14:30
Chapman, if the baby wasn't coming imminently, you think you would have taken a couple of days off when you think of a CGM and all the good that it brings in your life is the first thing you think about. I love that I have to change it all the time. I love the warm up period every time I have to change it. I love that when I bump into a door frame, sometimes it gets ripped off. I love that the adhesive kind of gets mushy sometimes when I sweat and falls off. No, these are not the things that you love about a CGM today is. Episode of The Juicebox podcast is sponsored by the ever since 365 the only CGM that you only have to put on once a year, and the only CGM that won't give you any of those problems. The ever since 365 is the only one year CGM designed to minimize the vice frustration. It has exceptional accuracy for one year with almost no false alarms from compression lows while you're sleeping, you can manage your diabetes instead of your CGM with the ever since 365 learn more and get started today at ever since cgm.com/juicebox one year, one CGM. Today's episode is brought to you by Omnipod. Did you know that the majority of Omnipod five users pay less than $30 per month at the pharmacy? That's less than $1 a day for tube free automated insulin delivery. And a third of Omnipod five users pay $0 per month. You heard that right? Zero that's less than your daily coffee for all of the benefits of tubeless, waterproof, automated insulin delivery. My daughter has been wearing an Omnipod every day since she was four years old, and she's about to be 21 my family relies on Omnipod, and I think you'll love it, and you can try it for free right now by requesting your free Starter Kit today at my link, omnipod.com/juicebox, Omnipod, has been an advertiser for a decade. But even if they weren't, I would tell you proudly, my daughter wears an Omnipod. Omnipod.com/juicebox Terms and Conditions apply. Eligibility may vary. Why don't you get yourself that free starter kit, full terms and conditions can be found at omnipod.com/juicebox

Chapman 16:42
probably, maybe a little bit of time just to get my head wrapped around things. But like I said, I didn't have to go the hospital. I wasn't, you know, deathly ill. I could still manage and I felt all right. That's the whole thing. This is what I was diagnosed. I still felt okay, okay. I didn't have lethargy, like some patients do. I didn't have all this. All I had was I made some pretty serious weight loss, yeah, and then I was peeing all the time, and then, you know, the numbness and tingling, which kind of happened for a couple days, and then went away. Sure. Okay, so it's relatively mild, still not downplaying type one diabetes as itself, but relatively mild. Initial did the weight come back? Oh, yeah, weight came back. Took about six months, but it came back. Did

Scott Benner 17:19
it come back and stop? Or did it come back and keep going? It came back and

Chapman 17:23
stops? Yeah. So I'm back to my normal 6190,

Scott Benner 17:26
that's great. Go back to what you were talking about about your job. You're that. You're the diabetes liaison. What is that?

Chapman 17:32
Now? What happens on like when you work in an inpatient unit at the hospital? And for my hospital, in this case, every person kind of has part of their continuing education. They're quote, unquote, on a committee and called a champion. So it's kind of some people are champions for, like, eating disorders or behavioral problem kids, or there's, you know, autoimmune kids, or, you know, asthma, respiratory illnesses, and diabetes was one. So mine was focused on diabetes. So I anytime we had, like, a new DKA diagnosis come in that would come to our floor to be on the triple bag therapy. So the insulin drip, my job was kind of to help all of our other nurses understand, because I had done some education about it to be able to help. So I'd be like, okay, are these bags set up, right? Are the calculations correct for the insulin drip and the dextrose fluid and the non dextrose fluid, things like that. So I was kind of all consumed in it, consider even future, considering a job in diabetes education, even before I was diagnosed, you know, I'd been approached to, you know, take one of our educator roles who had just retired, to say, hey, you could be great for this role. But then all this happened. I was like, I need to do something that I know how to do first before jumping into a new career with this new diagnosis, you know,

Scott Benner 18:43
16 months removed from your diagnosis, looking back on what it is you understood about diabetes at that point, how much percentage, wise, if diabetes is a, you know, is a pie, how, what slice of that pie was your understanding and what, what was left over? I'd say

Chapman 18:58
probably 75% understanding, really. Yeah, so I think if you go down to the basics, you know, what a high and low blood sugar mean, what insulin does in the body, how to use insulin correctly, and how to use a sliding scale like that was ingrained in me, because I've been doing it for I was on the floor for five years, you know, doing this day in, day out, with new diagnosis, talking to families, helping them Understand, getting it on simple terms of how to understand diabetes and what it looks like in a daily life. So that was part of my job. Like, you know, Kid orders their food. We sit down together. I say, Okay, how many carbs is this? Here's the receipt that shows how many carbs. I want you to look at all the food groups. This is what happens. This how it works in the body. This is how we dose insulin. So all of that was done prior to diagnosis. So when I was diagnosed, I had all of that in the back of my head. That was one good thing about, you know, being diagnosed right before the baby is I could, you know, just kind of go into nurse mode, check my sugar, give myself insulin, do whatever, and then just put in the back of my head and help take care of my wife and my baby. Okay,

Scott Benner 19:55
you're rock solid on the functional aspect of, yeah, how to manage somebody in the house? Hospital, like when they're when they're diagnosed, and you feel really good about the background information that people need for type one. So now, what have you learned since then that you didn't know? Where were the lessons along the way?

Chapman 20:14
Like fat rises, that was something that I was not ready for. You know, not really something that we paid attention to in the hospital too much, because that's kind of more, you know, at home, type of care. Learning right now in the hospital, I'm teaching you how to count carbs, how to keep yourself insulin, you know, then going home, and especially feeling the symptoms I hadn't really, you know, felt that. So the lows and the high highs, that was something I wasn't ready for. You know, trying to learn how to do, like extended boluses or split boluses for high fat meals. That was something that was really difficult for me in the beginning, and I still struggle with to this day, like trying to figure out how to dose correctly. But we can get into that too, talking all about honeymoon and everything, but,

Scott Benner 20:53
well, let me ask you one more question. Then I'll ask you about your honeymoon. Yeah, so when people tend to feel under prepared after a certain distance from their diagnosis. You know, once the things that they were told in the hospital prove out to not be all the things, then they get into that kind of like almost a panic spiral. Sometimes, what do you think could be done to stop that from happening?

Chapman 21:17
It sounds it sounds good to be able to stop panic from happening. But with type one diagnoses, it comes on so suddenly that you're just so unprepared that you can't be in the mindset to be ready for something like that. You know, I don't know that's a really

Scott Benner 21:32
good question. Don't worry, I'm not like, Oh, I know that's two plus two is four. It's not that kind of answer. But what I'm trying to dig out of your brain is, is you know what they're told, right? And you know what you were told, and then you now have the experience of going home and finding out that those things aren't all of the things that you need to know, right, right? So, and I take your point like you, if you overload them in the beginning, they're not going to remember anyway. You know, if you stick it in a book, nobody's going to read it like that kind of stuff. But is there any, like, big ahas, like, oh gosh, if we just would have also told them this, it really would have taken away a lot of trouble. I mean, is it just the idea of, like, a fat rise that would have been a big, big help for them, or is there something even more, I don't know, like a psychological like, support that would have been valuable, or did you or do you not feel like you went through it in that that way, where you can comment

Chapman 22:27
on it? Yeah, it's hard to relate. Because I think when I was in the hospital teaching families, I was, yes, I was teaching children, but a lot of them were younger and don't really have the, you know, ability to understand all these complex medical things. So I was, I was teaching families, and then if it's me as an adult diagnosed, I had to kind of change how I thought about it, because I was, you know, doing it in simple terms to help educate a child as well. So I think for me, having a support system that understands as well is huge. And I know families are a huge support system in the hospitals, but helping families understand, not just, you know, your parents support you, but community like the Juicebox community and you know, having your educators on hand and your endocrinologist on hand, that community is going to be huge in the success of your diabetes management. That you're not alone in this. I think that's something we could probably push a little bit more, is that you're not alone in any of this. That's the community is massive and so willing to help. And it's unlike any other community around because it is such a, you know, big deal. And to have so many you know, moms, dads, you know, friends that have the same condition as you, walking through the same issues with you is huge, and that's something that I didn't realize, is how important the community

Scott Benner 23:46
would be. Then would it be appropriate, maybe to tell somebody we've given you a lot to remember here, it's certainly probably more than you're going to be able to remember. And the truth is, it's not all of it. So find a place, not just with us. I think you have to say, I know it's just crazy to tell you, like I'm not your only support system as the doctor, right? Like you have to go out and find places where there's a congregation of people who know what you're talking about, so that when you have a problem that at the moment might feel unforeseen, like something we can't prepare you for right now, that you can almost instantly go to a body, you know, a body of people, and say, Hey, this thing is happening. Tell me, does anybody have any input? And then, boom, you're back on track again with some answers to things to look at. Is that

Chapman 24:33
fair? Yeah, absolutely, yeah, even if they don't have answers for you, even just solace knowing that someone is going through the same problems you're having, maybe they won't tell you how to fix it, but like, Hey, I feel you. I'm doing the same thing. We're in this together like that is that was huge for me going through some of that stuff.

Scott Benner 24:50
Okay, all right. I mean, I appreciate you picking through. I know it's so uncomfortable, but you don't have, like, a rock solid answer for something, and people are asking you questions, but I think it's value. Able to hear your perspective because of, because of your background and because of what's happened to you, and to hear that even now 16 months out, you don't have a like, you're not, oh, yeah, it's this thing I should have heard about, like, or, you know, somebody should have definitely told me about how to clear ketones. Or, you know, like, Yeah, you don't have something to point to, to go that was glaringly omnipoded, right? Which I think is helpful, because it points out that maybe, I think there was a time in my progression where I thought like those people have to do a better job. They can't. They're sending you home, and you're unprepared. And then I had enough conversations with the people who were unprepared and the people who were trying to prepare them to maybe realize that between the circumstances, the situation, people's capacity, the rest of life, everything else, like, you know, like, look at you like, you know, at some point you were, for nine months, helping people while you were worried about your wife, you know, and you had an underlying medical condition you didn't know about. So that's happening to more people than you think, who are out there trying to help you? Yeah? And maybe, I don't want to say, maybe, before the statement, I've come to the conclusion there is no answer and there is no like, there's no magic better, yeah, we're just waiting for someone to figure out and implement that used to be how I felt, like some smart person's gonna say, Oh no, this is what needs to happen, and that they would make a change, and it would work so well that, you know, the community at large would adopt it, and everybody who got diagnosed would be better off. But I just, I don't think that's it. Even last week when I interviewed a gentleman whose episode will be up just slightly before yours, whose young daughter, like really young daughter passed away before she could be diagnosed, and he's obviously bereft and out in the world trying very hard to draw attention to it so it doesn't happen to somebody else, which is very kind and a lovely way for him to be spending his time. But as he was talking, my experience left me thinking, you should do this. You should go out and you should bang on all these pots and pans and make people pay attention, and you probably will save somebody. But I don't know that changing the process changes anything like, I know it's simple to say, like, everybody should just get a finger stick when they have flu symptoms. But you know, you know people, yeah, what if you had the flu? And I came at you, and I was like, let me just check your blood sugar, they'd be like, Get away from me. You're gonna be like, What are you doing that for? And like, you'd find a different problem, I guess is my point. So yeah. Anyway, I you know, just like, picking through these conversations, sometimes to get answers and sometimes to get the proof that there is no better answer. Yeah, yeah, I get it, yeah. So what happened with your honeymoon there? Man, it was, it wasn't all simple and fun and easy. No, it's

Chapman 27:47
still going on. Man, is it still going on? Yeah, it is been just totally confusing. I really struggled with it, you know, physically and mentally earlier on, when I was MDI, I'm on a pump now, which has made it 1000 times better. Just constant, constant fluctuations, like, yeah, they say honeymoon is kind of a revitalization of your pancreas. It starts producing a little bit more before it finally gives out, you know. But mine is constantly changing every single day. My basal needs change every single day. My you know, carb, my insulin, carb ratios changes like every single day, and it's really tough to nail things down. I know nothing is going to be perfectly the same every single time, even post honeymoon. But, you know, a fluctuation of 3040, units Difference Day by day is huge. Is your

Scott Benner 28:39
endocrinologist calling it Lada, yeah, yeah, definitely, okay. How I forget? I don't know if I asked you how old you are? I'm 2929 is your first baby. Oh, yeah, yeah. You think you'll do it

Chapman 28:51
again? Yeah? Definitely, yeah. We want to have a we want to have a couple

Scott Benner 28:55
really awesome, the short, the short cervix held up. It did,

Chapman 28:59
yeah, so now we know about it, so next next time, we'll be ready. By

Speaker 1 29:03
the way, short cervix sounded like a humble brag at the beginning, but I realized that it was a bad thing. So I thought you were bragging on your wife, like she's got a short cervix. And I was like, Oh, I thought that was, like a big deal. So you want to have more kids so and you're experiencing this crazy honeymoon. Let me finish asking about the honeymoon before I ask you my next difficult question, we'll do a nice one, and then, okay, okay, how are you staying flexible through a honeymoon that appears to be changing daily?

Chapman 29:29
That's the million dollar question. Sometimes I feel like, I'm like, okay, yeah, I've got this. And then, you know, the honeymoon hits again, and I'm like, oh, man, that that sucks. But, you know, I don't have any other option but to get through it. So like I have, I have two different profiles on my pump. I have on a tea slam. So I have a high and a low profile. My high profile is kind of for my basically non honeymoon style numbers, with certain basal rate and instant carb ratio. And I. Usually expect, you know, 30 to 40 units a day, using that, which is still not that much like I remember giving kids way more than that on a daily basis, as when they're children and I'm an adult, and I'm using 30 to 40 units daily. I have my low profile, which I can tell, because I just have these crazy lows, these crazy falls from high sugars without doing anything, honey was getting back up, I guess switching my low profile, which, you know, cuts my basal into like quarters, and even then, still may not use all of it, it'll just cut off. So like yesterday, I'm in a honeymoon phase right now. Just started last week again, went back into it, and my my total daily insulin yesterday was 6.2 units all day. Oh, wow. So it's it's just constant fluctuation. So I have no idea when this little low spell is going to end, but I'm sure it will next week, and I'll be back to my high profile. So it's just very confusing, but trying to stay positive with it, knowing I have the technology available to help me manage this crazy

Scott Benner 31:00
time when the shift happens. How long do you wait before you believe it and pivot? About a day. Okay, so you're low for a day or high for a day, and then you think, oh, it's time to hit the button Exactly, exactly. Wow. That's fun. How has being a new dad interfered with diabetes and vice versa?

Chapman 31:18
The fear of something bad happening with me having a low or, like, more lows I'm more afraid of, because highs I can function, okay, but lows i I'm scared of, like, being alone with him and something bad happening to me, or like me carrying him down the stairs and I'm low and something happens, or something like that. So that that's kind of a hard thing to manage. So being aware of my blood sugars pretty much all the time, if it's just me and him, being hyper vigilant about, you know, having some low snacks or anything like that. But then if it's us as a family, my wife is very quick to be like, Hey, what are your numbers? Let's, let's try to figure out a plan before we do something. Anything can happen, like driving or what have you. So it's just being hyper vigilant about the worst case scenarios, which is kind of a morbid way to think. But you know, it's the best way to keep your family safe is to just always be

Scott Benner 32:09
prepared. It's just interesting to hear how you think about it. Yeah, prior to your diagnosis, Were you sick at all? Do you have a virus or cold or anything that, you

Chapman 32:18
know, I've actually talked to my endocrinologist about that, about what, what probably triggered this autoimmune response, and I think it was probably stress of work and anxiety of work. I struggled for a long time with some severe anxiety surrounding work. I started right before covid At the hospital, and then worked on the pediatric covid unit, through covid, and then that kind of made things difficult. You know, mentally, I had some, like, severe anxiety, you know, just trying to get out of my car to go to work or try to, you know, stay calm in situations where I, you know, had some, you know, flashbacks from the early days of covid and and then the pregnancy, trying to work through that. It was just all a lot of stress and anxiety, and I would think that could have been the trigger for autoimmune response to my body that shows my pancreas.

Scott Benner 33:11
I'm sorry, yeah, it's all right. That sucks. I say all the time, like, I don't understand, I don't have firsthand knowledge of, like, feeling anxious and But listening to people's descriptions of it over and over again is, I find it humbling to try to imagine what you would do if you're in that situation. Because, like, I mean, everybody's pulled up at work and not wanting to go inside, but if you're not anxious, you just go, can you just drop you going drag your car. I'm gonna do this exactly, yeah, oh gosh, I'm sorry. So, so you listen to podcast. I do, yeah, yeah, enough to say to yourself, oh no, I have an autoimmune disease. My wife has an autoimmune disease, and we have a baby, yeah, yeah. What process there.

Chapman 34:01
It's, it's tough. We've, we've checked the sugar a few times before, just because I'm, you know, hyper aware of the symptoms. I'm like, Oh, two parents with autoimmune, you know, it's, it's kind of, hopefully, I don't know, I don't even want to, like, verbalize it. It's hard to think about. But, you know, like, one time a couple weeks ago, we saw him just absolutely chug in some juice and water. I'm like, Dude, no, we cannot be doing this. Check of sugar. He's like, 72

Scott Benner 34:28
I'm like, Oh, thank you. Thank goodness. He's just thirsty. He's

Chapman 34:31
just thirsty. And then, like, he'll wake up with, like, a real big fat diaper, just pee through his clothes and just, you know, sleep sack. And I'm like, Oh no. Check of sugar, fasting sugar. It's like, you know, 79 I'm like, Oh, this. We're good. So, you

Scott Benner 34:45
know, it's funny. I wanted to ask you throughout the conversation about it, but I didn't want to just jump. I didn't want to just throw it in your face. And then you told me about the the anxiety. I was like, maybe I'll just skip it. Yeah, I didn't want to make you feel like worse. But, I mean, I don't think I can. Like, you're how you. Obviously have to be thinking about it. So, yeah,

Chapman 35:02
no, we were always kind of thinking about it, never really verbalizing it, because if you verbalize it, it kind of makes it real. And so, like, we're like, okay, I know, so scary, Lauren, but let's, let's just check the sugar. Okay, we check it, and we're like, is that good she I'm like, I said, Yeah, that's good. We're good. How does she

Scott Benner 35:20
handle your diabetes. Like, I think this is interesting because, I mean, I'm gonna say, like, it feels like she got two infants on the same day, probably, right, like, an actual infant and an infancy of a diagnosis, yeah, like, I mean, was she even able, or did you even want her to be involved in your understanding of your diabetes? Or how did that work out? Yeah,

Chapman 35:42
she she was willing and able, like I said, she is so gracious and so, you know, strong. I don't know where she gets her charisma from, probably putting up with you. That's probably where she learned, yeah, no. But like my diagnosis day, and she was, you know, eight months pregnant, seven and a half months pregnant, you know, wobbling through the endocrinology offices. I get my diagnosis, and then two days later, we give birth. And then a week after he was born, I had my first diabetes education session just to figure it out for myself. And then we had our seven day old baby at the office with us, and she is just locked and loaded, ready to go, taking notes like she's taking it and stride. Learned everything there's to know. It's a lily where we are, like two people in one mind about it. She is so incredible and so incredibly smart.

Speaker 1 36:25
That's lovely. But I'm now thinking, I want to interview your endocrinologist, because I bet when you guys walked out of that office, you probably bummed them out. So, like, they were, you know what? I mean, they probably sat across me, like, Oh, these poor people. Look what just happened. They got this little baby. This guy's got the diabetes. All of a sudden. You, seriously, you probably ruined their day, right? How did you stay upbeat about it,

Chapman 36:46
knowing that some of my endocrinologist is a pipe one as well, so it was very helpful to have that first meeting and talking to him about, hey, I have this as well. I know what you're going through, and I have kids too. So we're kind of in this together, like I was talking about earlier, having that support system is so helpful, yeah, and so that's kind of what got me through, is knowing that, you know, I have all these people on my side rooting for me, that if there's any any trouble, I can call them up, you know, get some answers, or some solace, or whatever I need at the time. So I'm doing much better now. Like I said, I was, I was really struggling for a while when I was MDI, but now I'm on the pump. It's just made things a lot better for me, mentally and physically.

Scott Benner 37:26
MDI, with a with such a harsh, swinging honeymoon must have been horrendous. It

Chapman 37:32
was brutal. It was brutal because I'd had they. I had my written down. This is my prescription for my Lantus. You take, you know, 12 units at night every day. But what if your need for that day was four units Atlantis? What if the next day was, you know, 21 units Atlantis? I had no way of knowing, because the Lantus, you know, has that extended period, and there's no way you can change it. If it's a low day, you're gonna have you're gonna be low all day, drinking juice, eating gummies all day long, yeah, just trying to stay above, you know, 60. And then there's vice versa, which is a little bit easier to do, because you can just give yourself a little bit extra Bolus, but when you're low, you just constantly drinking juice and eating snacks,

Scott Benner 38:09
everything is always tough. Yeah? It becomes about keeping your blood sugar up all day. Yeah?

Chapman 38:13
So now I'm on the pump and it's from on a low day, it's like, okay, you don't need the insulin. Let's just, let's just pause it and then make sure you're good. So that's what's been helpful for

Scott Benner 38:22
me. Yeah, no, I would imagine you said you're using the tea slim, yeah. Do you have a Dexcom? Or what do you use for CGM? G7 g7 okay, you like the you like the combination?

Chapman 38:31
I do, yeah, it's great, awesome. I see a lot of people talking crap about the g7 for some of the inaccuracies. And yeah, I mean, everything has their faults, but 95% of time. Benner, spot on. I never had really any issues with it.

Scott Benner 38:45
Yeah, I don't have a lot more to say about that than I've said that I've said in the past. I think it's technology, and it works better for some people than it does for other people. And you know, it's, you know, I, you know, I would say this. I would say the same thing to anybody who asked me. I'd say, why don't you get in a time machine, and go back 60 years, and then, yeah, yeah, then live there for three days. Then tell me about how much you don't like your CGM, right? So I mean, but at the same time I do, I genuinely want to be understanding of the idea of how frustrating it is, because it's seriously, I mean, it seriously, is Arden had a, I mean, like a 24 hours just over the weekend where, yeah, first of all, she's sitting down. She's just trying to take notes for a class, right? But she's six seven hours of taking notes, and her Dexcom runs out. Now, I want to say 10 days and 12 hours. So awesome, like it went all the way to the end, but she's sitting there writing. It's fine, it makes that noise. And she, you're like, oh my god, you know. And then she's just ignoring it. She's trying to get to a point where she can stop. And then at some point, I was like, Oh my God. Like, I can't take it anymore. So, like, I got a Dexcom out of the drawer, and I, like, put it on the table, like, next door, not, I'd say, 18 hours. Later, and this just happened overnight. To show like, the other side of the technology, three o'clock in the morning, she has a pot error, so she just it stops delivering insulin. How often does that happen? I don't know, twice a year. You know what I mean like, but yeah. How often does it happen at 3am when you've been up taking notes for 12 hours, and your dad's old and asleep, and you text, and you know this is a problem, and you go, you know I need help. And she thinks like texting me is going to bring me to her. But let me explain to you what happened. I didn't see the text, and she fell back asleep before she could get up and go get herself a pot. So it's seven o'clock this morning. My wife's alarm goes off. I was going to sleep till eight o'clock. That did not happen, Chapman, because my wife goes, Hey, wake up. Arden's blood sugar is 300 and it's rising. Wow. And I was like, Okay, so now I know immediately something's wrong with her delivery system. Because, I mean, we just don't see a 300 Yeah, I pop up, look at my text, see the pod error text, three o'clock. I'm already, like, walking downstairs, doing the math in my head. You know what? I mean, I'm like, All right, it's been four hours. She's gonna need at least four hours worth of basal plus a correction, you know, blah, blah, blah. I grab a pot. I grab some insulin. The dog looks at me, and he goes, with his eyes, he said, This Chapman, he goes, if you don't let me outside, I'm gonna pee on the floor. And I was like, yeah, right on. So like, I let him out. Because I was like, but then you're standing there, and I will tell you that 10 years ago, I would have stood there thinking, like, Martin's gonna be in DKA. I gotta go, like, yeah. But instead, I was like, just go pee real quick, man. And then while he was peeing, I was like, you know, fair is fair. I'm gonna pee too. So I went to the bathroom. I wash my hands, you know, do all the things. And then dog comes back in upstairs, give her a shake, and she goes, Oh, hey, my pot error. And I was like, Yeah, welcome to four hours later, she goes, wait what? And you can see her open her eyes and she realizes it's light out. You know, the first thing she said, if I, if I let you guess, what do you think she said, first I go back to sleep. It's gonna break your heart when I tell you, she said, I'm sorry. Oh, and I was like, oh god. I'm like, I was like, It's okay, don't worry. I was like, you know, next time call me, you know, like, let it ring or something like that. And she stands up, and I'm like, here are the pod, like, you know, do you want me to fill it? She goes, give me a second. I gotta pee. And I'm like, Man, everybody's peeing. And I said, Well, yeah, cuz your blood sugar is so high. And she goes, plus, I just woke up. She just wandered away. So, so I said, You all right? Do you feel nauseous? And she said, I don't feel nauseous. And I'm like, okay, she comes back and then puts a pot on herself, obviously starts it up. You know, she's on, she's in trio. And so the thing makes its first Bolus like as soon as it's on. But do you know how much a Bolus point nine? Oh my gosh, because it's not going to do like. And I said to her, like, I waited because I see she's exhausted, she wants to go back to sleep. And I'm like, Arden, you need to look closer at this insulin. You can't just put this thing back on and let it start working, and you haven't had insulin for four hours, yeah? And she's like, I know. And I'm like, okay, but I walked her through my thinking. I was like, Look, you're four hours without basal. That's four four units. And I was like, and, you know, she did not take her GLP this week, so her correction factor is bigger. And I was like, top my head. I'm like, this correction could be over three units, you know, plus the four. I'm like, I'm at seven. I don't even know if that's 100% right. I'm still, like, half asleep, you know. And she puts it on, and then the then the algorithm is, like, I think we should do nine. And I said, it thinks nine, what do you think? And she goes, let's do that. So she put nine units in. That's now two hours and 50 minutes ago, and her blood sugar is 150 right now, okay, and she's coming down pretty gracefully, but I wonder if I looked, if it wouldn't want a Bolus right now. Let me look, yeah, it's starting to think the algorithm is starting to believe that she's doesn't have enough, but it's recommended Bolus at the moment. It's only point 180 wow. And so I'm gonna let that ride a little longer. She's obviously still asleep now, obviously, because she's in college, and she doesn't have a class for two more hours, so she's gonna sleep a little longer, right? But I think that in the next 10 minutes, when we get to three hours, and I'm not doing it by time, I'm doing it by what I'm looking at here on the Dexcom, I think in about 10 minutes, I'm gonna look again, and I think it's gonna want another Bolus. It's actually Bolus thing a little bit along the. Way, yeah, it gave her only little bits, giving her like point one. So far, it did a point 7.70 it's been Bolus thing, even with the nine. Wow. All right, let me go back and I'll tell you, because I think this is good for people to hear. It did the point nine, like I said, when she put the pot on. Then we did a 9.3 right away. That's 10 units, okay? And then it wasn't much later that it did. Point three, 5.0 5.25 it's jacking her basal up. The 1.6 an hour, takes the basal away, starts getting a drift down, does a point one, hits with the basal again, another drift down hits with the basal again, takes the basal away. It hits 223, at 8:51am, and then it starts to go back up again. It Bolus is point seven, pushes the basal up to two and a half an hour, another point seven, not long after it created the next dip. It's leveling out now. Got a tiny dip. We're finally back under. You know, 200 to 166 or so for the last hour. Did another point one? Just recently a point, oh, five, like two seconds ago. I'm sharing all this. First of all, I'm talking through it because I want five more minutes to go by so the Dexcom reads again. So I can tell you the next number, because the Dexcom says 152 right now. But I'm telling you all this because I think in a million years, most people wouldn't think, Oh, I've just been out of insulin for four hours. I need the amount of insulin that I've just said. Arden's, you know, five seven. She weighs 130 pounds. 135 pounds, right? And I think there are people who go much longer without insulin or without enough insulin. And I think it's helpful to hear like, these numbers aren't your numbers, right? Like, if this happened to you, you wouldn't be making the same exact decision. But I think it's interesting to hear like, bigger picture, what are we really talking about? Like, because Arden is a person who maybe uses 24 units of basal a day, you know. And depending on, depending on if she's supplementing with, like GLP, like micro dosing, or not, like, you know, she might use another 20, 3040, units of insulin a day, depending on where she falls in. That thing, how her hormones are, how she's eating, etc. Still, no matter what you say there, whether it's 40 and 25 or 20 and 25 1015, units, is a big percentage of that, yeah, you know. And I don't know, I just think it's, I think it's helpful to talk about out loud, you know, because, you know, maybe you'll hear something in that, in that story, that that not you, but somebody else, that makes them think like, oh, maybe I don't understand how much insulin I need sometimes, you know. So anyway, I just I had an experience last week with a recording with an adult. There were some things they didn't understand about their diabetes that surprised me, made me feel like some of the stuff needs to get said out loud a little more frequently. Blood sugar is 150 now after the last check. So I'm going to push the point too, because I can do it remotely, and ask you, if you've considered using T Z yield in the last year.

Chapman 48:13
Is that the honeymoon extending type of medicine that they do at the beginning?

Scott Benner 48:18
Yeah, sure enough. Did it at any point in that? Did you think about it, or did you know about it early enough?

Chapman 48:23
Yeah, so I heard about it, think, from the podcast a long time ago, or, like, not long time ago, a long time ago for me, yeah, around diagnosis, and then my endocrinologist mentioned it, and I don't think I want to at all, because of kind of where I'm at in my honeymoon, I think with just this insane variation of insulin use, you know, with a variation of 3040 units different day by day, I'm kind of at this point where it's like, I just kind of want the honeymoon to be over so that I kind of have some sort of understanding of what to do day is going to

Scott Benner 48:59
look like. Your perspective is, I am eventually going to end up with type one diabetes. Full on. Yeah, putting it off for me just means making it too variable longer now Exactly, yeah. Let me add a pretend like layer to this question. What if and again, let me be very clear, this is not the case. What if they said to you, hey, in most cases, it'll extend, you know, the amount of time before you're, you know, really need a ton of insulin by three years, and it's possible forever. Would you try it? Then I'd think about it. Yeah, that would make it a little more attractive. But the idea that it's just going to extend it, but eventually happened, that doesn't tickle your fancy. Really, exactly, awesome. When's the last time anybody said, tickle your fancy? Yesterday? Wait what

Chapman 49:47
I say all the time. Man, do you really I do?

Scott Benner 49:51
Yeah, awesome. Look at you. You might have been maybe you're unknowingly bringing out my deeper understanding of you. So how. One, do you guys think you'll wait before you make another, a little baby?

Chapman 50:03
Yes, that's a great question. It's been a whirlwind year. We know we don't want to wait too long,

Scott Benner 50:09
you know, you

Chapman 50:11
know, maybe the next year or two,

Scott Benner 50:13
really. And you're both on you're on board, both of you. Yeah, definitely awesome. Awesome. What does your wife do for a living? Do I know

Chapman 50:20
now she works in cyber security, and it really, yeah, she's, she's very smart.

Speaker 1 50:26
I just spent a full day at a cyber security Expo. Oh, really, my god, yeah, yeah. I think I told the story, like, somewhere, my brother and I don't live in the same state anymore, and he had to come back home, you know, to go to this, this expo, and he's like, You come with me. And he's like, we hang out all day. And I was like, All right, so, like, I moved my schedule around, and I went and hung out with him while he, you know, gathered information he needed for work and went to, like, talks and stuff. And I was just like, hanging out and everything, you know, I did it so we could chat and be together and have lunch and everything. But it was also at the eagle stadium, so that didn't hurt. I got like a, I got like an on field tour, and I got to, Oh, that's awesome. Tour, the tunnel, where they come out and everything, which was really neat. Yeah, all they talked about was cybersecurity. I know what the hell they were talking they were talking about,

Chapman 51:17
it's a, it's a wild, wild field. But, you know, it's, it's really, you know, booming right now, yeah, just with all the increased technology, they need some protection. So that's what she does. I

Scott Benner 51:28
will say this, and nobody's asking. It's just a CDE W event, if they're listening, or anybody from CDE w is listening, your main speaker was not great,

called out,

Speaker 1 51:41
maybe they, I won't even say, like, I won't even give anybody a hint about who it might have been. I don't doubt that the person knows what they're talking about or has a ton of experience. But I mean, as far as, like, capturing a room, Holy Hannah, not good. A couple of a little more practice would have been very helpful. Oh gosh, she made me want to, maybe want to run my head into a table. I looked at my brother. I was like, Are they all like this? And he's like, what? I'm like, Are you not smelling that? This is not exactly well delivered. And he's like, Nah, it's okay. And I was like, Oh God, you must get the worst speakers, you cyber security dorks. Like, you know, I don't know, practice talking to people if you're gonna do this. Really did make me want to leave the room. I actually looked at my brother. I felt like my mom for a second. He had a big bag of like, stuff that he had to take back to work, and we were gonna go on the tour afterwards, and and I said, Uh, hey, give me your bag. I'll take it out to the car. Get me out here. He goes, You sure? I'm like, Yeah, give it to me. I say we don't want to walk around with this while we're on the triggers. I'd be great. And I was like, plus, you know, like, jeez. Like, maybe give me five minute break from this. Anyway, public speaking is not, not easy. I feel, I feel bad, right? Anyway, she really was terrible. What have we not talked about that we should have.

Chapman 53:01
I think we hit some pretty big points. Yeah,

Scott Benner 53:04
you don't feel like anything's left on set. How did you find the podcast? One of

Chapman 53:08
my diabetes education friends I was talking about, she'll probably listen to she's been texting me once a week. Hey, when are you recording? When you're recording? I can't wait. I can't wait. She told me about it. She's so it was a great resource early on to find why

Scott Benner 53:20
doesn't she come on the podcast? You

Chapman 53:22
definitely could have or she is a wealth of knowledge. She is one of the smartest people ever.

Scott Benner 53:27
Well, we need more smart people, because all I really bring is, like, you know, perspective and dumb stories. So like, yeah, we need more smart people,

Chapman 53:35
yeah. So she, she's a veteran pediatric nurse turned diabetes educator. So she is a great person to talk to, should reach out please, definitely. I'll send her a text.

Scott Benner 53:44
Yeah, I appreciate her telling you about the podcast. Has it been valuable for you personally, like with your with your management, and if so, what parts of it so people know where to go look.

Chapman 53:53
Yeah, absolutely. The Pro Tip series was fantastic. Really helped me kind of wrap my mind around, you know, the basics about everything that kind of hits, like a wide range of things, you know. And then what was the one other series, like the first diagnosis, bold beginnings,

Scott Benner 54:14
yeah, this part always breaks my heart a little bit, by the way. No, you don't need to be sorry. There's no reason for you to remember it like, it's just like, when you live in it, like, I do, oh yeah, you know, you're just like, oh, it's the bold beginning series. Or, you must know, this link and blah, blah. And I'm like, people don't know any of this. They're just like, they're just bumping into it and getting to it when they need it. Yeah, no. But

Chapman 54:33
listening to bold beginnings really helped me when I was just in a panic state, like, sat down, mentally unavailable for anything I'm like, I just need to listen to some, someone who understands, who can help me process this. So that that series was incredible for me. I really thank you for

Scott Benner 54:50
that. No, no, and Jenny, being from the Midwest, didn't bother. Yeah, I'm just kidding. That's awesome. I'm very happy to hear it. Yeah, you. Is it a thing you would tell other people about? It is, and I have

Chapman 55:03
definitely, all right,

Scott Benner 55:04
let me ask you, like, when you got through with the series, did you think, Oh, I was great, except there wasn't enough something, anything missing from it. I think

Chapman 55:13
when I was going through my early, early honeymoon, I know you have the honeymooning episode, but I was wanting more and more and more information about it. I know it's such a not taboo, but it's so misunderstood because there's not enough information about it. They don't really know, like, why it's extended like this for adults, or, you know, X, Y and Z information. I know you can't provide that, but that was what I was searching for at that time. So I need, I need to figure out why this is happening and how I can fix it.

Scott Benner 55:44
The why felt important. Why? Exactly? Yeah, it wasn't comforting to you to know that it was just going to be variable for a while and then it would stop being variable at an indeterminable amount of time.

Chapman 55:54
Exactly it's I'm just like, why? So I need to know why. I need to, that's the nurse part of me. It's like, I need to know why. I need to know why. I need to know how to fix it. I need to see results. And so is

Scott Benner 56:05
it not true though? Like in the end that it's going to be variable, you're not going to see it coming, because it's not going to tell you, and it'll last as long as it lasts. It is, in the end the truth, right? It

Chapman 56:14
is the truth, definitely, but it's the truth that no one to me personally, I don't want to swallow, because you want to know things. You want to know when's the end and what's it gonna look like. So living in that unknown is difficult.

Speaker 1 56:25
I hear you, man, that part sucks. The unknown is, yeah, yeah, I guess, especially if you're an anxious person too. How, by the way, how is your anxiety Great? Is it better now, do you do something for it, or is there something you figured out?

Chapman 56:39
No, not necessarily. I mean, I never really had it until, you know, this started happening. Yeah, I didn't really understand what was going on. Why do I have this feeling in my chest? Why do I can't I breathe? Why can't Why can't I stop crying, you know, but you know, kind of having some help with the pump. I'm not saying a pump is a fix all for everybody, but for my mental health at that time, it really helped me, because of just the constant change and fluctuation and management was really, really difficult for me, you know, trying to raise an infant and, yeah, you know, break it down. So having something taking off my brain, just a little bit of that weight lifted was so helpful.

Scott Benner 57:17
Big deal. So make sure I understand the timeline of this. Then you're not an anxious person, but then you're a nurse, and covid hits, and then you, you gain some of that anxiety, and then the diagnosis and the diabetes and the baby, and then it piles up, yeah, okay. And then, literally, you got a pump, and then that took off, loaded a little burden. And then you kind of, would that do give you enough, enough ceiling space, little headspace to like, get through the rest of

Chapman 57:44
it exactly? It's exactly right? Yeah, I just took off enough load to be able to focus on the other important things that wasn't able to focus on my marriage, my child, and things like that.

Scott Benner 57:54
Can you give me, give us an example of something that happened during covid that that made that time as a nurse fraught and and that it stuck with you enough to start impacting a person who otherwise wasn't anxious to be to feel

Chapman 58:09
that way. Yeah, I mean nothing specific. Thankfully, covid in children back then wasn't as severe. I know I'm not Gosh, I don't want to make anybody upset, but in overall, in children, it didn't affect them as much as it did adults, physically, physiologically. And so we didn't have any kids, you know, passing away or anything on our floor. We did have some pretty insane management of it, with oxygen use and medicines and things like that. But if you just think back to that time looking outside, the streets are empty, stores are empty. You can't go anywhere. And then, but you're a nurse, you got to drive to work through all that. It was terrifying. And then they made my unit. We have 12 different floors at our hospital, and my floor was chosen as the cohort covid unit. So if anybody had covid that came to the hospital, they got sent straight to us. And so we're working through the unknown with all of our n 90 fives and masks and goggles and gowns. 24/7 sweating, getting bruised faces from our masks, everything it was, it was in continuing on doing that for two and a half years during the height of covid every single day, just took a toll on me, and that mental strain, even if nothing crazy was happening, or having some PTSD thoughts of people screaming, dying, stuff like that, even just like the day by day, work of it was scary for me. I know for others it wasn't, but for me, it really impacted me, and so that's kind of where it all started

Scott Benner 59:38
for me. How long had you been a nurse when covid started in three weeks, you had been a nurse for three weeks. Then covid happened,

Chapman 59:46
march 2, 2020. Was my first day on the

Scott Benner 59:49
floor. My goodness, what did you do before? Was you just in school? Prior to that, that was, that was my first job out of college. Geez. Yeah, no, man, that's not right. Yeah, it was.

Chapman 1:00:00
It was quite unfortunate. But, you know, I I pride myself on it now, because how many other people get to say they were a nurse their first, you know, month on the job, covid hit. And if you don't learn anything hitting the ground running, covid will do it too. That crazy time. I

Scott Benner 1:00:15
guess you have a hell of a perspective now, and probably does it make now post covid, post, you getting through your, you know, your initial impact, you know, for you personally, like, do you feel a little more like matrixy? Does everything seem a little easy and a little slow to

Chapman 1:00:31
you? Yeah, definitely. And I think after, like, the craziness, craziness died down, you kind of looked at things a little differently, because you're like, Oh, we got through that. We can do pretty much anything I would imagine. This tough thing comes in. Hey, we got through covid trying to do all the same things with all this craziness going on. We can do this. So it gives you a sense of pride,

Scott Benner 1:00:54
honestly, thinking back now, pressure makes diamonds, my friend, absolutely. There you go. You sound like one hold on. One second for me, we're done. You were terrific. Thank you, awesome.

The conversation you just heard was sponsored by touched by type one. Check them out please at touched by type one.org, on Instagram and Facebook. You're going to love them. I love them. They're helping so many people at touched by type one.org this episode of The Juicebox podcast is sponsored by the Omnipod five. And at my link, omnipod.com/juicebox you can get yourself a free, what'd I just say, a free Omnipod five starter kit, free. Get out of here. Go click on that link. Omnipod.com/juicebox check it out. Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox links in the show notes, links at Juicebox podcast.com Are you tired of getting a rash from your CGM adhesive? Give the ever since 365 a try, ever since cgm.com/juicebox beautiful silicone that they use. It changes every day, keeps it fresh. Not only that, you only have to change the sensor once a year. So I mean, that's better. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox podcast. If you're not already subscribed or following the podcast in your favorite audio app, like Spotify or Apple podcasts, please do that now. Seriously, just to hit follow or subscribe will really help the show. If you go a little further in Apple podcasts and set it up so that it downloads all new episodes, I'll be your best friend, and if you leave a five star review, ooh, I'll probably send you a Christmas card. Would you like a Christmas card if your loved one is newly diagnosed with type one diabetes and you're seeking a clear, practical perspective, check out the bold beginning series on the Juicebox podcast. It's hosted by myself and Jenny Smith, an experienced diabetes educator with over 35 years of personal insight into type one, our series cuts through the medical jargon and delivers straightforward answers to your most pressing questions. You'll gain insight from real patients and caregivers and find practical advice to help you confidently navigate life with type one. You can start your journey informed and empowered with the Juicebox podcast, the bold beginning series and all of the collections in the Juicebox podcast are available in your audio app and at Juicebox podcast.com in the menu. Hey, what's up, everybody? If you've noticed that the podcast sounds better and you're thinking like, how does that happen? What you're hearing is Rob at wrong way, recording doing his magic to these files. So if you want him to do his magic to you, wrong way. Recording.com, you got a podcast. You want somebody to edit it. You want rob you?

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Scott Benner 10/21/25 Scott Benner 10/21/25

#1658 Dr. Michael Haller Returns

Dr. Michael Haller returns to discuss early T1D screening and how identifying risk markers can open doors to preventive steps that delay or slow diabetes onset.

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
Welcome back, friends. You are listening to the Juicebox podcast.

Dr, Mile Haller 0:13
Good morning. Thanks for having me. This is Michael Haller. I'm Chief and professor of pediatric endocrinology at the University of

Scott Benner 0:20
Florida. My grand rounds series was designed by listeners to tell doctors what they need, and it also helps you to understand what to ask for. There's a mental wellness series that addresses the emotional side of diabetes and practical ways to stay balanced. And when we talk about GLP medications, well, we'll break down what they are, how they may help you, and if they fit into your diabetes management plan. What do these three things have in common? They're all available at Juicebox podcast.com, up in the menu. I know it can be hard to find these things in a podcast app, so we've collected them all for you at Juicebox podcast.com while you're listening, please remember that nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. The episode you're listening to is sponsored by us Med, US med.com/juicebox, or call 888-721-1514, you can get your diabetes testing supplies the same way we do from us med. A huge thanks to my longest sponsor, Omnipod. Check out the Omnipod five now with my link, omnipod.com/juicebox you may be eligible for a free starter kit, a free Omnipod five starter kit at my link, go check it out. Omnipod.com/juicebox Terms and Conditions apply. Full terms and conditions can be found at omnipod.com/juicebox I'm having an on body vibe alert. This episode of The Juicebox podcast is sponsored by ever since 365 the only one year where CGM that's one insertion and one CGM a year, one CGM one year, not every 10 or 14 days ever since cgm.com/juicebox

Dr, Mile Haller 2:20
Good morning. Thanks for having me. This is Michael Haller. I'm Chief and professor of pediatric endocrinology at the University of Florida.

Scott Benner 2:27
Michael, welcome back. I appreciate you for having me. No, I had such a good time talking to you the first time I thought we would come back and do something else. Let's see, do you remember what we talked about last time?

Dr, Mile Haller 2:38
We talked about lots of things that we started with the intent of talking about inhaled insulin and novel insulin therapeutics. I think we wandered a little bit into immunotherapies for delaying disease and protecting remaining beta cells for patients.

Scott Benner 2:54
And maybe we'll talk a little bit more about what early testing right now and things that maybe can be hopefully done for type one before the on the complete onset. Yeah, that's what I'd hope to talk with you about today. Awesome. I'm trying to look here while you're speaking. I have you trying to see what we called your episode, because it's not up yet, but by the time people hear this, they will have heard it, feel like I have it here somewhere, like it's a grand rounds episode. I think that's what I did. I did. I think, I think I called it grand, grand rounds, inhaled insulin. I think I called it because you were so thoughtful. People can go find if they enjoyed you today, after they heard this, they can go find more of you there. Perfect, excellent. You know, before we started recording, I asked you if you saw this, this news story about something I saw recently about CRISPR genes and somebody having beta cells replaced. And I want to get back to that, but I don't think I want to start there. I want to say at this point I didn't have a podcast, so it was over 11 years ago, maybe more, I had this scientist on that the JDRF set me up with, and he went on and on and waxed poetic about this pouch they were going to make, and the pouch was going to have cells inside of it, and they were going to open your body up, put the cells inside, give you this, you know, immune suppression, and this little wallet full of cells was going to act like your pancreas and on and on and on. And all I really remember beyond that from that conversation is that I asked him, All right, let's pretend for a second. You got it all figured out. It works. How long until I go to Target and get this for my daughter, you know? And he goes, Oh, 15 years. And I was like, wait, what? And he goes, Yeah. Like, if we had it worked out today, there'd have to be manufacturing. We'd have to get the cells. Like he was go on and on, what would have to happen, right? And he's like, so if we knew how to do it today, it would be about 15 years before we could have like, a mass roll out of it. Does that timeline still work? If something was found today? Do you still think it would take that long to get in the hands of an average person?

Dr, Mile Haller 4:54
It's hard to always predict what the regulatory pathway and timeline is going to look like, so I don't think. They were that far off. Sadly, I wish we could compress it a bit. I think it's likely that the timeline will continue to get compressed as more of these options for Cell Therapy come to be and they're potentially even more effective, and it might get a breakthrough status from the FDA, but it's not a trivial thing, to build up the machinery to manufacture these kinds of biomaterials and develop cells that are effective, and then do the studies that are going to result in getting approved. But of course, it's a noble effort, because for the 99% of patients with type one diabetes who are living past stage one or stage two, where they don't need insulin, or past stage three, where the early onset but still have a lot of beta cells left. We're going to need beta cell replacements to provide meaningful, curative therapies for patients. So undoubtedly, people will continue to do the work in that space to try to bring better things to the field as fast as we can. But, but, yeah, it's a slow process. When

Scott Benner 6:06
you hear people you know in your circles talking about all of this, is there ever any you want to get involved in something like, Forget medicine for a second? Like you want to get a car that does this thing? Or you, you know, you want a new television and you think, Well, I'm not going to buy it this year because I heard the one that's coming next year is going, does that happen in medicine too? Because it just occurred to me, like, if they figured it out, like today, and they were like, Hey, we can do it. And, you know, like you said, we're starting to build up infrastructure, and all the other things that have to happen is it not in the back of somebody else's mind, we're probably going to figure out something better than this before we can get this working. And does that feeling slow people down from like, rushing forward, like, Don't you have to be all in on what you're doing and see a pathway, not just to getting it to people, but to, I'm assuming, make money with it, so that somebody will actually get behind it. You know what? I mean? Yeah,

Dr, Mile Haller 6:57
I think that's a good place to compare the difference between scientists and academics and and the commercial aspects of these things. But obviously they have to work in tandem to ultimately get something to patients. You know, scientists are iterative people. They just like to keep doing things to learn and figure out how to do it better, and the notion of we're going to do it better at some point beyond, you know, the thing that I've developed tends not to bother the scientific community, because I know that's the means to progress. It's a bit more challenging on the commercial side. To your point, because, of course, you know, people there have to be able to generate a return on their investment by way of profit of selling a device or a product or a drug, and so they are very much in tunes to, is somebody going to have a, you know, a better widget? The day after I spent 10 years of development to build mine?

Scott Benner 7:52
Yeah, I write you a $3 billion check, and next week I find out I could have had something that was faster, better, cheaper, to production, etc, so on. Like, how do I know when to jump in?

Dr, Mile Haller 8:03
Yeah, so I think that has been a challenge in the type one space, certainly on the immune therapy side, because there hasn't been a large number of therapies that have gotten a label. At this point. We have typlizumab as the only FDA labeled immunotherapy for type one. And there is, you know, Zema cells are the first cell therapy for type one to get a label, mostly around the manufacturing process of that cell approach to islet transplant. But I think the technology space is probably a good example of where that can still be effective and provide patients fast access to new, meaningful therapeutics or machinery to take care of their disease, because there's a number of people in the space, and all of them are trying to innovate to make a better system faster, and there's room for everybody to both make profit and truly develop better better pumps and better CGM so my hope is that we get to a space in the immunotherapeutics or cell therapy world where that can happen too. I think we're just at the fair, you know, we're sort of at the infancy of of that with toplasymab, you know, getting getting across that first finish line, so to speak. But, you know, being nowhere close to the end of the race that we all want to achieve, which is, you know, having a handful or larger number of drugs therapies that we can offer to people who might be at any stage of the disease. You know, that may offer something that you or somebody else's family would call a viable cure. And of course, that may mean different things to different people. You know, there are folks who would be happy with a pump and CGM style cure to their disease if it really meant they didn't have to think or worry about their their diabetes, and they were comfortable and confident that it was going to take care of it. And there are others who, I think very reasonably, say nothing is a cure until I literally have nothing on my body and my body works like it's supposed to, and I don't need. Insulin exogenously there too. I think that the two things are going to continue to be developed in in parallel and hopefully complement each other. And I don't think there's a problem with that.

Scott Benner 10:09
I think you said two really interesting things are the first idea that, you know, using the like a pump or a CGM manufacturer as an example, like they're in the game already, so they need to keep iterating, because I think we've seen how society works with like, a phone, for example. Like, nobody's happy until the new one comes out, and you haven't gotten to I still have to touch all this a number of times. Like, I just, I told you before we got I was two minutes late jumping on because my daughter's rushing around. She's a little late for school, and she's like, can you please bring me a pod? Because I got to change my pod and like, until those, like, those touches go down, you know, right? You're still there. But maybe that's why we should be happy that it's Sanofi, right? They bought Tim as a pop from prevention. So, like, we should be happy that somebody threw their hat in with their wallet, because now they're going to keep pushing. They're pot committed now

Dr, Mile Haller 10:59
100% Yeah, use that exact phrase all the time when I'm talking to patients and families. They are pot committed. Companies don't commit that number of dollars unless they do see a way forward that can generate return on their investment. It all but forces their hands to continue to innovate and develop new therapies. So to their credit. Sanofi has a number of promising immune therapies in the pipeline that are in clinical trials as we speak, that hopefully will complement to plasmab maybe be better than diplomacy map may work better for certain patients. And so again, that may get us to that space where it feels like it feels with with pumps and CGM now, and you have some choice, and you can advocate for yourself and decide which one of those things makes more sense for you or your

Scott Benner 11:46
patients. There's a framework that can be built on, hopefully that somebody's, you know, they're in already, they're not going to stop now. You don't lay out 3 billion and then go, hey, you know what? Forget it exactly. Yeah, you'd push good money after bad before you just gave up. So hopefully that that keeps the process going, and maybe you'll find out that maybe that drug will lead to something for people who don't have diabetes, like, who knows what's I certainly don't understand the the mechanism of the molecule so, but I'm hoping they do, or they wouldn't have bought it. That's my hope there. The reason I bring this up, I'm going to kind of fold together with this next thought, and then we can move forward. I see a lot of conversations online around stuff like this, right? And people either they kind of lean one of two ways that, and the one way they'll Lean is, like, it's coming. They fixed it. I saw there's a lady in China. She doesn't have diabetes anymore. Like, you know, I saw this here. They did it. It's coming. Like, they're either way too enthusiastic or the opposite of it. And I think we've gone over the first part, I want to ask you about the latter, just your personal opinion. What would you say to somebody at a cocktail party, for example, who said, yeah, yeah, no one's ever curing this. There's no money in it. They want to keep me sick. It's more viable for them financially that way. And then they tell you the story about the light bulb that doesn't burn out. And they got the guy in the room and took his patent and his light bulbs and burned all the stuff. And like, you hear all those kind of those stories after that, like, I would tell you that if you asked me to just you gave me money, you said, Scott, you got to bet this one way or the other. I bet that if something comes up, it'll make it'll it'll see the light of day, and people will say it, they'll at least know it exists. I don't know if that means money will get behind it or not, but how do you feel? This episode is brought to you by Omnipod. Would you ever buy a car without test driving it first? That's a big risk to take on a pretty large investment. You wouldn't do that, right? So why would you do it? When it comes to choosing an insulin pump, most pumps come with a four year lock in period through the DME channel, and you don't even get to try it first. But not Omnipod five. Omnipod five is available exclusively through the pharmacy, which means it doesn't come with a typical four year DME lock in period. Plus, you can get started with a free 30 day trial to be sure it's the right choice for you or your family, my daughter has been wearing an Omnipod every day for 17 years. Are you ready to give Omnipod five a try? Request your free Starter Kit today at my link, omnipod.com/juicebox Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox find my link in the show notes of this podcast player, or at Juicebox podcast.com I used to hate ordering my daughter's diabetes supplies. I never had a good experience, and it was frustrating. But it hasn't been that way for a while, actually, for about three years now, because that's how long we've been using us Med, US med.com/juicebox, or call 888-721-1514, US med is the number one distributor for free. FreeStyle Libre systems nationwide. They are the number one specialty distributor for Omnipod dash, the number one fastest growing tandem distributor nationwide, the number one rated distributor in Dexcom customer satisfaction surveys. They have served over 1 million people with diabetes since 1996 and they always provide 90 days worth of supplies and fast and free shipping. US med carries everything from insulin pumps and diabetes testing supplies to the latest CGM like the libre three and Dexcom g7 they accept Medicare nationwide and over 800 private insurers find out why us med has an A plus rating with a better business bureau at us med.com/juicebox, or just call them at 888-721-1514, get started right now, and you'll be getting your supplies the same way we do.

Dr, Mile Haller 15:56
Yeah, no, it's a common question, and parents and families ask it all the time. I'm of the opinion, I think like you, that if you really had a therapy, a biologic approach, that was curative, you as a company could name your price. And the example I'll give that is gene therapies. Right now, there are gene therapies on the market that cure awful diseases. They cost three, four or $5 million a patient. Why? Because the return on that investment is well worth it, and insurance companies are paying it, because if they don't, that patient is going to cost them significantly more. When you look at the lifetime cost of living with diabetes, and I mean all costs, both for buying all the equipment and medical complications down the down the line, and you know, the quality of life, years added, there's no doubt that a therapy that really was a cure could be a profitable therapy for somebody. Now, will that put other people out of business? Yes, but that, you know, that's true of lots of things in the history of innovation and medicine is a reason why people should continue to strive for that, and why I don't buy into the notion that somebody is hiding a cure somewhere. That just isn't the way scientists work, certainly, and even though there might be companies in pharma that would benefit from things being slower to get getting to patients than others. Eventually, things at work are going to find their way forward.

Scott Benner 17:25
I would also be inclined to be a little more cynical but hopeful at the same time by saying that the person looking for the quote, unquote cure is not the person selling you insulin or pumps or whatever else you're buying, where people think like, oh, they want us to keep buying this stuff? That's another person like, there's an ice cream shop on the left side of the street, and I'm going to open up one on the right side of the street. My ice cream is better than your ice cream. I'm going to put you out of business. That's kind of my point is that if someone came up with a cure, they would get financial backing from a group of people who are not involved in diabetes, and those people would look at that as a way to get wealthy off of curing your diabetes, like, I don't know why, yeah, yeah, it seems simple,

Dr, Mile Haller 18:09
yeah. And, I mean, there's the real world examples of that even now. So look at the one you just gave was Sanofi, and they they make in Atlantis, you know, arguably the highest selling in terms of dollars. I think insulin in the world still, and yet they're in the space of trying to prevent or delay the disease. The world's market for type two diabetes and insulin is still huge. And so they can continue selling insulin for a long, long time in that market, even if there are biological therapies for type one. And similarly, Lily, you know, other major producer of insulin, is now in the immunotherapeutic space as well, because they have a therapy, paracetamol that that looked really good in a trial done in Australia called bandit, and they're moving forward to do a stage two and stage three study for potential labeling in the US, internationally. So I think there's places for company to companies, even, even single companies, to be in both spaces and essentially be diversified so that they can have opportunities down the road. Again, I'm not a business guy, so that's not the way I think, but I think that that's that's a reasonable way for for people to see the space and try to avoid the sort of conspiracy theory mindset that somebody is going to keep something that's going to help people and patients locked away.

Scott Benner 19:30
Yeah, okay, I appreciate you going over that room for everybody out there is worried about it. Go find Bigfoot or something. Put turn that, turn that energy on something important as to whether or not there's really UFOs. Need pictures of messy too. Yes, listen, I run a very small business compared to the business that someone's going to run one day if they come up with a cure for diabetes. But if you handed me the cure for diabetes right now, I know how I would market it. You know what I mean? And I not a business mind. I'm assuming that smarter people than me can figure it out. By the way. I want to say I don't think they just see. Dollar signs. I also think that people really motivated people like that. I think they would enjoy having their name attached to something that changed the world that way, right? Great. Michael, like, wouldn't you want your name on that? You know what I mean? Like, if you had that kind of thing, I'd want people to know I did that. I'd want people to I'd want people to know that somebody figured it out that science figured it out, that maybe you guys should get out there and work on something else. Because look what we figured out. You know, we absolutely, yeah, it's only been, what it said, 100 years or so since they came up with insulin. That's the other thing that cracks me up. Like it's been forever, like it's been 100 years. That's not long. This episode of The Juicebox podcast is sponsored by ever since 365 and just as the name says, it lasts for a full year, imagine, for a second a CGM with just one sensor placement and one warm up period every year. Imagine a sensor that has exceptional accuracy over that year and is actually the most accurate CGM in the low range that you can get. What if I told you that this sensor had no risk of falling off or being knocked off? That may seem too good to be true, but I'm not even done telling you about it. Yet, the Eversense 365 has essentially no compression lows. It features incredibly gentle adhesive for its transmitter. You can take the transmitter off when you don't want to wear your CGM and put it right back on without having to waste a sensor or go through another warm up period. The app works with iOS and Android, even Apple Watch you can manage your diabetes instead of your CGM with the ever since 365 learn more and get started today at ever since cgm.com/juicebox one year, one CGM.

Dr, Mile Haller 21:43
It really isn't. It is sort of amazing when you step back and think about where we've come in 100 years, from an insulin at all to, you know, all these analog insulins and pumps and CGM that were, you know, purely science fiction are now reality, and they're only gonna get better. So yeah, I think the pace of discovery is accelerating, and I think there's lots of reasons to be hopeful rather than pessimistic, but at the same time, you have to be a realist and know that unfortunately, the cure is not tomorrow or even next year. Yes, it's still a ways away.

Scott Benner 22:19
So then I'll share with you, and I'll ask your what you tell people, but I'll share with you the when someone asks me directly, Scott, what do you think about there being a cure for type one? I will tell them the same thing over and over again. I live hopefully, but we're pragmatic, so day to day, we act like it's never gonna happen like that. Arden's health long term is focused on us doing a great job day to day, hour to hour, sometimes, right? Like it's never going to happen, so we need to keep her as healthy as we can for as long as we can. But I'm also not, not hopeful, and I do think all this stuff is incredibly interesting. Like, am I going to see it in my lifetime, I'd bet against that. I'm in my mid 50s. I'd bet against that, right? If it happened, I'd be thrilled. What I hear is that if somebody came up with it today, I'd be 69 by the time maybe they could get it to market. I'm also listening to stories about how AI is changing every three months. So in my mind, medical research is going to probably get more and more, I don't know, hopefully faster, with the help of, you know, baby like, instead of bench doctors and people sitting down, taking notes and keeping spreadsheets and hoping to find, you know, a connection between this and that maybe AI will get better and better. They'll all dump their data into it, and the thing will go, Hey, I can't believe you haven't noticed this. You know what I mean, like, and maybe that will speed things up.

Dr, Mile Haller 23:49
Yeah, I agree, yeah. And I think that's a appropriate and reasonable way to think about progress. I also am a big believer in having hope. Am optimist. But the thing that drives me nuts is false hope. And there are a lot of people out there who, unfortunately are pedal it contour salesman. They're pedaling in misinformation. And all that does is serve to, you know, upset people further. It's like the whole notion of, you know, the decade of a cure and just just, it's right around the corner. I think that's that's not being fair and transparent, right and realistic for people, that just sets the field back. So I will never give people a timeline either, because I just don't think that's right. I don't think we really know. So why I suggest that you do, but I do think we're every day making progress towards it, and I

Scott Benner 24:37
appreciate that people need to fund their labs, but every time you save a mouse from something, maybe you don't make a press release, because there's every time you do that, it finds somebody whose kid was just diagnosed 10 minutes ago, and they think, Oh, listen, it happened to me 2007 my daughter had diabetes for less than a year, and I woke up one morning, was reading the news, and there it was somebody. Ordered a mouse from type one diabetes, and I actually said to my wife, I can't believe how lucky we are. Arden was diagnosed with type one diabetes right before they cured it, and that was 19 years ago, and I was like, really heartbroken when I realized, when my poor wife had to pull me aside, she's like, listen, dummy, and she explained it to me, but it's how emotional I was at the time, yeah, it's

Dr, Mile Haller 25:21
hard. You can't ignore those things. And fortunately, there are great discoveries made in the lab on a regular basis, but, but I agree with you, I hate that the press and sometimes even the investigators over promise, yeah, and then ultimately, under deliver, when people finally realize, oh, well, that was the 500th experiment, the nod mouse that was curative. Obviously, none of those have translated yet to humans in a very meaningful way.

Scott Benner 25:50
So if you look at those, Michael, the conclusion you come to is that we'd be better off trying to turn people with diabetes into mice, because apparently we know

Dr, Mile Haller 25:58
really good at curing mice. Fantastic at that. You know, I don't care much about about the mice. I care about kids and people in with type one, and so, yeah, that's patients and families all the time. It's just to start a model. It's proof of concept. And to your point about AI like we are now building and have used these in silico models where we we dump in all the data from all the clinical trials of type one in people, and try to model, you know, what might happen with different therapies. So, so you're right. I think we will get faster and better and smarter and hopefully have more personalized approaches as we, you know, understand that that type one diabetes is really 1000 different diseases with different flavors, and some patients are going to need, you know, a certain therapy, and others a different one. And so hopefully, as we continue to get better and better at that, we can, we can really provide meaningful therapy

Scott Benner 26:49
to more people. I genuinely don't remember where I heard this the other day, but some guy running a lab somewhere, I don't even know what they were researching, and he says, Because of AI, he was able to, I guess, fire a lot of his staff because the AI is doing the work that the staff was doing. And I thought, Oh, great, he'll cure the disease, so that people have more time to sit around and not do anything. They won't have a job, you know, at least we'll all be alive. So anyway, all right. So right now, September 2025 what's the best thing we have going? Where should people be focusing? And is there something they could be doing for themselves or for loved ones? What is real and tangible?

Dr, Mile Haller 27:25
Yeah, I think the lowest hanging fruit silver lining kind of stuff is around screening people for risk, for type one, and identifying the ones who are unfortunately going to develop the disease early. Now we know that the community rate for diabetic ketoacidosis at diagnosis is between 30 and almost 50% in some some communities, and unfortunately, we do a far better job of treating DKA. Analysis that the fatality rate is low, but it's not zero, and it's devastating when we lose a kid because of, you know, a previously undiagnosed case, and DKA, on the other hand, if we're screening effectively and identifying people early and getting them enrolled in follow up and early stage clinics, that DKA rate goes down to less than 1% and we convert, you know, a traumatic diagnosis story with an ICU admission and parents not knowing if their kids gonna survive to still a terrible diagnosis, but one that is far more gentle and safe and allows people to transition to the know the idea of now I gotta live this life with type one diabetes, and even there, we're doing a pretty poor job of screening everybody who is at high risk. You know, one in 300 people in the US, at least kids get get type one diabetes. So it's not a particularly rare disease. And that number is one in 20 when you start talking about first degree relatives of people with type one. And last time I checked, you know, everybody had a mother and a father and and most people have siblings in this country, and so there are tons of people living with type one whose first degree relatives are not being screened. And it's really a shame that we're not doing that, because that that's not a research question anymore. You know, it was when we first started doing the diabetes prevention trial and trying to figure out, could we pick up who are the people who are going to eventually be the type one patients of the future? That question of equipoise is a research question is answered, and it's now something that should be standard of care. And every pediatrician and family practice, Doc and internal medicine doc who has patients with type one diabetes, they'd be reminding them, and if they see their siblings or their parents or their young nieces, nephews, cousins, should be reminding them, telling them that they should be getting screened for type one antibodies. And the hope there is if we identify all these folks, so we develop better therapies that will come. Convert type one diabetes from an insulin managed disease to the immune mediated disease that it is, and pick up these folks and treat them to delay their disease, and hopefully one day be able to prevent it

Scott Benner 30:12
entirely. So first of all, like, I think that's awesome, but I have, you know, a kid with diabetes, and there's autoimmune stuff in my family, and I look up at my extended family and I see autoimmune in them that they don't want to hear about you. Try to tell them, and they ignore it. Nobody wants to hear so let's say I actually do get them to go to the doctor. How do I get them to a doctor that doesn't just go, you don't need to scream for that? You're fine, because you're gonna like, it seems like there's so much, I'm gonna use the word ignorance. There's so many, so much ignorance on this path. Like, right? Like, we're counting on me, or somebody like me to say to somebody else, hey, you know, I think you ought to look into this. If you're lucky enough to talk them into it, they're going to go to a doctor who's very likely going to tell them, Nah, you're fine. Don't worry about

Dr, Mile Haller 30:54
it. No, you're absolutely right. I was, I was just at a diabetes camp weekend, Family Weekend, this weekend, a lot of new onset families. And I asked them, like, how many of you had your endocrinologist in this your endocrinologist, not even just the their, you know, their general pediatrician mentioned that your family members should be screened for antibodies, and the response rate was abysmally low. I think it's just a failure of education, of our ability to, frankly, do a marketing job of telling people there's so much out there to know in terms of medical knowledge and practice. So you can't know everything, but this is something that's pretty darn simple, requires just ordering before biochemical antibodies that are in everybody's electronic medical record system to order now and getting folks to do it. So there's a system we call therapeutic inertia that exists until it becomes standard of care meaningfully, even though it's written in the guidelines. Now, it's just not yet something that everybody is practically doing. And changing people's behavior is hard, so we got to start by educating, educating, educating, and get people to be aware, and then they start to do it. And once it becomes habit, then then it will spread. So that's what we really need to be working on.

Scott Benner 32:07
Yeah, the pathway to it seems, I mean, full disclosure, I did ads last year for screen, for type one, and even I was as I was making the ads, and I was like, God, this seems like this isn't going to work. There's a lot there. And then I've seen how they've kind of gone this year with the I'm gonna get, I'm gonna guess the Chrissy Teigen People magazine article has something to do with it, right? Like, and that kind of stuff. But that's not, I don't know. It just feels to me like you just maybe got to go to the doctors and say, like, look, just take a family history and just you need to be the one to say to them, like, hey, why don't we screen for type one diabetes while we're here? Because, I mean, because that's cutting out a number of steps. And, I mean, it would seem to, if you're gonna, like, I don't know, it just seems, it seems like a lot to me, to for me to have to talk a family member into believing and the family member into being lucky enough to find a doctor that's in on this whole thing, and then, even if they are for that doctor to then know what to do. You know, afterwards is the LEAP again. I think the education doesn't lie with the public. I think the education lies with the physician that could order the test that's just

Dr, Mile Haller 33:12
completely agree with you. I think the, you know, the screen for type one program, which is supported by, you know, Sanofi, is really focused on general population screening and guidance, because ultimately, 90% of new onset patients don't have a family member. So you know, just screening family members is going to not give you the biggest overall yield of future type one patients. But my counter to that as always, well, we're not even doing that low hanging fruit of screening all the family members of people who do have type one. So we should kind of, you know, crawl before we walk and run. And you're absolutely right. I think the focus needs to be on educating the providers. They're the ones who have to click the boxes to order the labs, and if they don't even know the names of the labs. They're certainly not going to do that. So we have to, you know, educate them, make it easy for them to do, make sure they get, you know, appropriate reimbursement for when they're spending time talking about counseling and screening for autoimmune disease and Type one. And so those are things that we're actively doing. You know, in Florida, for example, we had some funding from the state this year to expand screening programs for type one, and so we're doing exactly that. We're doing educational sessions, providing continuing medical education for providers going to providers clinics, to literally show them how to order antibodies and what their options are for doing it with either point of care collection kits or sending patients to commercial labs or doing it through a research assay. So I think you know all those modalities have to be used and have to be optimized before we're going to see, you know, the real large number of folks being screened in. For the 60 something 1000 new onsets a year in the US. You know, it's only a tiny, tiny fraction of those that knew that they were going to progress and had antibodies measured before the disease. And that's a shame. I mean, many of those folks we could have picked up if people were screening family members.

Scott Benner 35:17
You know, can I thank you for a second, because I sat in a number of meetings saying this, and people looked at me like, Oh, look. Podcaster boy thinks he knows what he's talking about. Thank you for agreeing. That's all I wanted to say, because I feel, I feel vindicated, because I felt Listen, Michael, and between you me and everybody listening, I took their money and I made the ads, but I first tried to tell them like, I don't think this is where you should be putting the effort. Like, I've been in this space a long time, like I think you want to go this way. I was, I think I did an interview once, and I've said it to them privately, to beta bionics with eyelet. I was like, I don't know what you're doing for marketing, but skip it and just go write the PCPs, because those are the doctors that are helping people with type one who don't go to endos, who very likely do not have good outcomes. Start slapping your eyelid. Pump on those people that's going to help them. Like, you're going to take people with 1011, 12, A, one, CDE, put their a, 1c, and seven. Like, come on. Like, that's a no brainer, but those are the people you're trying to find. You're talking to me, you're on a podcast. I'm talking to people who are on the razor's edge of their diabetes care. These are people who are forward thinking, out in front, putting a tunnel like effort into trying to figure out how to get a six, five AC to a 1c down to five nine. They're trying to get their time and range from like 80% to 85% they're not they're not trying to turn a 12, a 1c into a seven, like you're looking in the wrong places. The

Dr, Mile Haller 36:37
marketing for the one percenters is different than the folks who are,

Scott Benner 36:42
Michael, no one listens. I sit here and get frustrated sometimes with this screening thing again. Like, you know, I guess I'm never gonna get an ad again, but you guys are going about this all wrong. The lady on the peloton that's not going to do it for you, okay? Like, come on, who's watching peloton videos. Michael, you know what I mean.

Dr, Mile Haller 37:05
I can't disagree with you. I know all screening is good in that we identify more people the Yeah, it does seem like they kind of jumped steps one, two and three and went straight to sort of step four, when they when they could have gone with with a lower hanging fruit

Scott Benner 37:22
ESPN, whose wife or daughter or somebody has type one. I'm like, Oh my God. Like, you got to get your head out of New York and the marketing scene there. And, like, see what it is you're trying to really accomplish here. You know, are you trying to put together a marketing campaign that looks awesome? Are you trying to actually reach these people? Anyway, I said that in a meeting, so I'm not afraid to say it here. They never called me back, so I don't think they agreed with me. But you know,

Dr, Mile Haller 37:48
I've done some advisory boards for for companies too, and I'm not shy about sharing my opinion, but sometimes that means

Scott Benner 37:57
they're not calling me again, but they, you know, the funny thing is, is that they should. They really should. I mean, you other people like me, like, I've been around this for so long, like, I know how it goes. You can't just hire a marketing team who no one has diabetes on the team. They don't know anything about it. They spend the first 30 minutes of the phone call asking you to explain the drug to them, like, you know what I mean, and then, and then suddenly I see all this money goes out the window, and there's tag lines and colors and websites. And I was like, this isn't going to get seven people screened. I would actually like to see people get screened, because I've interviewed people who have used that drug and their kids are not developing diabetes. I've interviewed the people who, you know, actually put that pouch into them. You know, for science, maybe this getting screen thing will or won't lead to you having some benefit, but it's definitely going to lead to somebody having a benefit 510, 15 years from now. Like, if we all don't like do a bit, this ain't going anywhere. Like, everybody's got to do their part to make this move forward. You're not just sitting back waiting for the people or the guy or the lady with the thing to do the thing. It's not like that, like everybody's got to get involved. You know, it ain't gonna go anywhere.

Dr, Mile Haller 39:11
Yeah, and I think that's where maybe the pharma folks are hoping that they're seeing, you know, 10 years down the line where we really are doing general population screening and its standard of care, and every single kid who comes through the pediatrician gets antibodies screened and and they're not wrong in that that's what it will ultimately take to identify every single one of those 60,000 kids who's going to progress before they progress. But you know, some of our group's counter argument has always been that's nice, but, but there's all these folks over here that are much higher yield on the per patient ratio that we're not doing a very good job of yet, either or yet, and we should probably focus on those folks first.

Scott Benner 39:51
Yeah. Well, listen again. I want to thank you because, like, sometimes I feel insane in those conversations and and it's not lost on me. Listen for people listening. It's not. Lost to me. I'm a guy that makes a podcast. I have no degree, I have no background, like Michael, you went to more school the first day of college, and I've gone to my entire life. Okay? I mean, this is obvious, and somehow it's not obvious to the people who are making the decisions half the time. And that's that's upsetting to me, because I really do think the screening would be beneficial. But anyway, good luck everybody. All right, so let's pretend they actually get somebody to get screened. They find a doctor who's willing to screen them. What's the process like? What do they expect to have happen next?

Dr, Mile Haller 40:29
Yeah, so I think we're just trying to give people choice providers, namely choice and how they do this, and make it easy for them. You know, there's the point of care, collection kits, enable Biosciences. There's point of care collection kits from the Ask study run out of the Barbara Davis Center, Colorado. There's even home kits that we provide capillary collection through through trial net. And then there's sending people to get a Venus draw at Quest or lab core. And you know, I think proponents of screening in high risk populations, we just need to make it as easy as we can, so that there's no no other inertia, creating barriers for folks to get it done, because there's always a reason, an excuse, to not do something when it's not an emergency in the person's eyes. So that's, that's what we've been trying to do, and certainly awareness campaigns and education campaigns for for the doctors helps and and then the next step, of course, is when they get somebody who's positive, we have to make it as easy as possible for them to do the right next thing, which is first confirm the antibody status. I'm I'm somewhat surprised by the number of folks who get, you know, a single antibody test and then label themselves as having early stage diabetes without a confirmatory antibody, which the you know that that should be done for sure. But then when somebody you know is identified with with multiple antibodies and confirmed with antibodies, they need to be followed up in, you know, an early stage clinic. All the data that I spoke of before that shows reduced eka rates. You know, that wasn't in the vacuum of somebody just being told your antibody positive and walking away your antibody positive. And we're going to follow you, you know, with metabolic testing, and remind you of your risk for type one, you know, every three to six months in a study setting, and that's where we saw the decay rate go so low. So we want to make all those things easy for providers. So we Florida, our team here has set up an early stage clinic where most of what we do is guidance and education, and because of that, we're able to serve people throughout the entire state because we do it through a telemedicine clinic. So if you're a doc in Key West, or your doc out in the Panhandle and anywhere in between, you can call us and we can set up a telemedicine visit with a family to talk through what it means to have antibodies and what their child's risk really is and what we should be doing to monitor them, and then that allows us to talk through all their choices and options. Do you want to be in trial net and have follow up that way and be offered studies? Or do you want to just have clinical follow up and be a candidate for typlizumab? And I think, you know, the most difficult thing is talking to families after the fact, when they're diagnosed, and they say, Oh, I wish I had known about all these opportunities. And they just, you know, they just didn't get that opportunity. Because in their world, their circle there, there weren't people who who knew about the the notion of screening and follow up.

Scott Benner 43:38
Yeah, yeah. Well, Michael, the the amount of I wish I would have in the world, or are great, right? I wish I would have wore my seat belt. I wish I would have stopped smoking. I wish they are endless. Yes, that's usually when it's too late, is when you're flying through the air, thinking maybe I shouldn't have brought a motorcycle. I feel like we're talking to, I don't know if you're aware of this, not Michael, but a lot of physicians and clinicians listen to the podcast. So I I really feel like, like we're making a bigger picture argument to people out there to get screened, but at the same time, I hope who we're really talking to are the people who could actually maybe make a difference on this. So for those of you listening, here's an example. I interviewed a woman not so long ago, and her kid was, you know, misdiagnosed a couple of days at a time, and then there was a person who was supposed to call and tell her to go into an ER, but, you know, went home from the doctor's office without making all their calls that day. And you know, some days later, her daughter's in the hospital throwing up what they described initially as black tar, and eventually, and I forget what it is, it's not common, okay, but it happened to this kid or esophagus and like that. Trust me, the details are lost on me. Go find the podcast episode, but it was like, from the DK, like it was rotting inside, like she was throwing up her flesh. And that is not a thing that's going to reverse for her, and now the rest of her life is impacted by. This. And literally, somebody just had to say, like, why don't we do a finger stick? Why don't you go to the hospital? And so many people drop the ball along the way. And I'm not saying this happens to everybody, but it happens to more people than you think, and some of those,

Dr, Mile Haller 45:15
no, it's a common experience. And just at this family weekend, I asked people to tell their their diagnosis stories. And invariably, you know, there's one out of 15 or 20 that was seen by a handful of providers in the weeks prior to their diagnosis with symptoms and signs that should have been plainly obvious. And like you said, all they needed to do was a finger stick or even a urine dipstick, and the diagnosis would have been made prior to the kid or adult getting particularly

Scott Benner 45:47
sick. And that's it's good that you bring up those numbers, because I do think that, generally speaking, most physicians, clinicians, etc, like, do a great job for people like, I'm certainly not,

Dr, Mile Haller 45:58
you know, it's not the majority of people, but it's still too many. You know, one's too many. So it happens, absolutely, when

Scott Benner 46:03
it happens, it happens that you have no idea how many people come on this podcast, they start talking about their health. And I'm, I want to be 100% clear. Michael, I think the number was 56 days. That's how many days of my senior year I didn't go to school. Of high school, okay, because I was poor and I went to my job at a my uncle's sheet metal shop to make $4.50 an hour. Okay? And so I would go to work instead. I was not a good student, and I still graduated, and I went along the way and blah, blah, blah. And now here I am making this podcast. And I realize you all probably wish it was somebody else whose diabetes podcast got really popular, but you're stuck with me. It was mine. Here I am interviewing somebody, and they're talking about their life 10 minutes. I'm like, Hey, you're anemic. And they go, what? I'm like, you're anemic. You have hypothyroidism. No, I don't. No, you do. You just described it to me. My point is, I know when people describe it to me, how the hell does a doctor not know? Like, this woman's describing her kid who went through this DK, and the whole time she's talking, I'm thinking like the kids got type one diabetes, like no one notices this when it happens to somebody again. I don't think it's a lot. I don't think it's everybody. There's a ton of you out there doing a great job. No one's talking to you. But every once in a while, we're going to hit a clunker, and some people hit a couple clunkers in a row. They go to an urgent care, they don't get a good answer. They go to a doctor, they don't get, Oh, you got the flu. Blah, blah, blah, next thing you know, you're throwing up your esophagus like that kid's got a real lifelong problem now that a week earlier didn't exist in them, if somebody would have just said, Hey, it sounds to me like you might have type one diabetes. And my point is, is if a guy that skipped his senior year of high school to cut sheet metal could figure it out, I guarantee you that a doctor could figure it out too, like it just something's wrong along the way. I don't think we're going to fix that bit, I guess is my other point. You know what I

Dr, Mile Haller 47:47
mean? Well, despite your despite your lack of formal schooling, clearly you are gifted in the art of observation and talking to people. This is why your podcast has been so so successful. And good physicians do exactly that. And unfortunately, the current American healthcare system has disadvantaged providers in practicing the art of medicine, and they don't always take the time to sit back and recognize what is fairly obvious to others, hindsight always being 2020, so it's easy to Monday morning quarterback it but to your point, like those, those kinds of misses are still far too often and easily could have been avoided if we did a better job of educating those providers you know about early signs and symptoms of type one, and at least made sure it was somewhere in the back of their mind, so that when the next kid comes in, you know, vomiting and losing weight in the middle of flu season, they don't just write it off as being as being flu or gastro enteritis and send them

Scott Benner 48:51
home. I'm sure this makes some people upset, and you know, who are scared of AI and me, you could probably mark me as somebody who's scared about what might be able to what might happen too, but I do have this like I am 100% certain I've settled on here so many times. I hope somebody just steals the idea, because I don't certainly have the capital to get it started, but I think that it would be incredibly valuable if people had an app on their phone that they spoke to and just told it how they felt, that would iteratively keep all of their conversations and complaints and continue to look at them, because that's, to me, is the way that you're going to diagnose things in the future. Because even if you get a good doctor, you're counting on, I mean, Michael, you know this, right? You're counting on the person to come in and actually say all the things and not to mislead you with their theories about what's going on. And then you have to You're also arguing with your wife and you got a kid who's like, you know, I mean, like, everybody's got a life. There's a lot going on in people's heads. If you had a simple, personal AI that you said, like, Hey, I woke up this morning and my knee hurt, like, anteriorly, just right here. Like, I don't know it's only happening when I'm driving. And, you know, this happened to me, and my bowel movement was kind of runny today, and, blah, blah. Lot, eventually you'd say enough to it that it would go, Hey, you should look into this, because that's really what you're asking of a doctor, but you're asking them to do it 10 minutes at a time, three times a year. And I really,

Dr, Mile Haller 50:12
I'm bought into the use of AI to take care of patients already. I mean, I have many times put symptom complexes or patient complaints in to see if it broadens my differential or makes reminds me of something I didn't know before. And right? My philosophy in teaching has always been, you know, don't memorize stuff, understand it, and it just makes that so much easier. Now you don't, you don't have to memorize every single pathway or every single name of a drug, but if you at least can give, you know, a large language model like chat, G, P, T, the right information to go find it. It will make it far more efficient for you. So you can get back to that, that art of medicine, of really observing and talking to patients and families and and that's what I think the future is like. I don't think AI will replace doctors, but I don't think there'll be any doctors, successful ones who don't use AI, right? That's just, that's just the way it's going to be. So you can either choose to adopt the technology and let it help you take better care of people, or, you know, you can become a dinosaur,

Scott Benner 51:12
yeah, and it'll stop people from having to send a bunch of people into DKA to learn their lesson as a physician, because that is really what happens, right? Like, it's trial and error, like everything else, like you everything else, like, you keep having experiences, Till one day your brain just goes, Oh, that's this. Like, I've now seen that enough times that it just pops into my head. It's not lost on me. You can't teach somebody everything they need to know to be a doctor in medical school. Like, I get that, yeah, you know, and that there are some people out there who want to be great doctors. There's some people out there. They're like, hey, my mom told me to be a doctor. I'm a doctor. And, you know, yeah, right. Like, so there's a, there's a, you know, a mix of of situations you're going to run into. But going back to the person, the person who's sick, they don't know who they're going to go talk to. They don't know if you're about to walk in with a doctor who's been at this for three days or 30 years. Like, you know what I mean? Are you the one they're going to send into DKA to learn their lesson? Like, that's that doesn't need to be like that anymore. I think at this point, when I go to a physician now, or if I send my kids, I know with reasonable certainty what's going on before I get there, but everyone's been directed. Don't say it out loud. Keep it in your Keep it inside. Let them do their job. And if they don't get to what you're thinking about, that's the time to lay your bread crumbs out and say, Well, I also saw this and this and this. I was wondering if maybe it could be that, and let them think about it. Because I find that if you go in and say your thing, then they don't do their process. And you don't want to take them out of the loop. You'd like to hear what they think and what they what their you know, thought is here. But you also don't want to walk in and walk out when you're 99% sure this is the problem. So I don't know, like I hope everybody I know people say, advocate for yourself. It's I hate that honestly. I hate that word. I hate the idea that you need to do that. I hate the idea that there's possibility that I'm going to run into a physician who you know, if I don't advocate for myself, isn't going to help me. Like you have to arm yourself with as much knowledge as you can, let the physician do their job and then fill in where you don't hear back from them. But you got to do it in a way that doesn't rub people's egos wrong or come off like you're telling people, it's, it's a it's a dance, it really is. You know, it's hard to go to the doctor, is what I'm saying. You know, there's too many people walking around might go with a TSH of four being told they're fine. They've got six different things. They're struggling with it. All point to hypothyroidism. Like that just happens all day long to people. How does that happen? By the way, yeah, well,

Dr, Mile Haller 53:39
that's a that's a good example of one that the data don't really support. There being much that should be treated with the TSH that's in that range, but lots of people come in with the symptoms, and it is hard for physicians to differentiate the ones that may really have symptomatic hypothyroidism that needs to be treated with a high normal reference frames, TSH from, from those who have very valid complaints, but they're coming from other things. So it's not all black and white in medicine for

Scott Benner 54:10
sure. Yeah. So you need people who have been through it enough times to say, like, look, I see the symptoms. I'm going to get you some medication. We'll, we'll see what this does here. And, yeah, I mean, that's just that. One's a is a thorn in my side because it, it, it really, like, derailed a large portion of my wife's younger life, you know, like walking around, fortunately, yeah, it's just, it's, it's upsetting and so, and now, since then, I've had tons of doctors on who talk about it differently. There's a great thyroid series on the podcast, if you really want to understand it like Dr Benito comes on and talks about she'll medicate you 2.1 or higher with symptoms you're you're going to get a thyroid replacement from her. Interesting, yeah, and she helps people at an incredible she's one of those doctors you can't go see anymore because too busy. You know. Do you think that it all. Ends up going that way one day, are the ones that really know what they're doing just going to open their own practice and be cash pay?

Dr, Mile Haller 55:07
Oh, I hope not, just because I think that will result in only a small portion of people having access to to the best of care. I mean, it's tempting for physicians to do that because it's, you know, because it gets rid of all the middlemen and logistics and allows people to spend a lot more time with their patients and provide care that way, we here at our at our institution, at least in our clinic, it's we're about 60% Medicaid, so we would immediately be leaving almost all those patients without access to endocrinologist if we did that. So I think we just need to do better jobs of of improving the system so everybody can have access to good

Scott Benner 55:43
docs. Yeah, is there anything that we didn't talk about that you wanted to that was lovely conversations got I appreciate it. Thank you. I'm gonna keep bugging you to come on like you're great to talk to. Thank you. I appreciate your time. Hold on one second for me. Okay, thanks. You.

The podcast episode that you just enjoyed was sponsored by ever since CGM, they make the ever since 365 that thing lasts a whole year. One insertion every year. Come on. You probably feel like I'm messing with you, but I'm not. Ever since cgm.com/juicebox a huge thanks to my longest sponsor, Omnipod. Check out the Omnipod five now with my link, omnipod.com/juicebox you may be eligible for a free starter kit, a free Omnipod five starter kit at my link, go check it out. Omnipod.com/juicebox Terms and Conditions apply. Full terms and conditions can be found at omnipod.com/juicebox a huge thanks to us med for sponsoring this episode of The Juicebox podcast. Don't forget us, med.com/juicebox. This is where we get our diabetes supplies from. You can as well. Use the link or call 888-721-1514, use the link or call the number get your free benefits check so that you can start getting your diabetes supplies the way we do from us. Med. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox podcast. If you're not already subscribed or following the podcast in your favorite audio app, like Spotify or Apple podcasts, please do that now. Seriously, just to hit follow or subscribe will really help the show. If you go a little further in Apple podcasts and set it up so that it downloads all new episodes, I'll be your best friend, and if you leave a five star review, ooh, I'll probably send you a Christmas card. Would you like a Christmas card? If you're looking for community around type one diabetes, check out the Juicebox podcast. Private, Facebook group Juicebox podcast, type one diabetes. But everybody is welcome. Type one, type two, gestational loved ones. It doesn't matter to me if you're impacted by diabetes and you're looking for support, comfort or community, check out Juicebox podcast type one diabetes on Facebook. If you're looking to meet other people living with type one diabetes, head over to Juicebox podcast.com/juice. Cruise, because next June, that's right. 2026, June, 21 the second juice Cruise is happening on the celebrity beyond cruise ship. It's a seven night trip going to the Caribbean. We're going to be visiting Miami Coke, okay? St, Thomas and St Kitts, yeah, the Virgin Islands. You're gonna love the Virgin Islands. Sail with Scott in the Juicebox community on a week long voyage built for people and families living with type one diabetes. Enjoy tropical luxury, practical education and judgment, free atmosphere. Perfect day at Coco basal kits St Thomas, five interactive workshops with me and surprise guests on type one hacks and tech, mental health, mindfulness, nutrition exercise, personal growth and professional development, support groups and wellness discussions tailored for life with type one and celebrities, world class amenities, dining and entertainment. This is open from every age you know, newborn to 99 I don't care how old you are. Come out. Check us out. You can view state rooms and prices at Juicebox podcast.com/juice, cruise. The last juice cruise just happened a couple weeks ago. 100 of you came. It was awesome. We're looking to make it even bigger this year. I hope you can check it out. The episode you just heard was professionally edited by wrong way, recording, wrong way, recording.com,

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Scott Benner 10/20/25 Scott Benner 10/20/25

#1657 Bain’s Mom Marlee (TikTok) - Part 2

Scott talks with Marley, mom to one-year-old Bane, diagnosed after DKA and a life flight. From ICU to CGM and Mobi, she shares hard-won reality, faith, and growing TikTok advocacy. Part 2 of 2.

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
Hello friends, and welcome back to another episode of The Juicebox podcast.

Marley 0:14
Hey, my name is Marley. I have a type one diabetic, one year old son named Bane. And you may have seen us on Tiktok or Instagram and now even Facebook, but we just post our life as a family handling type one diabetes and our toddler son, and just go with the flow and do whatever.

Scott Benner 0:39
This is part two of a two part episode. Go look at the title. If you don't recognize it. You haven't heard part one yet. It's probably the episode right before this in your podcast player. If this is your first time listening to the Juicebox podcast and you'd like to hear more, download Apple podcasts or Spotify, really, any audio app at all, look for the Juicebox podcast and follow or subscribe. We put out new content every day that you'll enjoy. Want to learn more about your diabetes management. Go to Juicebox podcast.com up in the menu and look for bold beginnings, the diabetes Pro Tip series and much more. This podcast is full of collections and series of information that will help you to live better with insulin while you're listening, please remember that nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. Today's podcast is sponsored by skin grip. Your devices, they can fall off, but with skin grip, they stay secure for the full life of the device. Juicebox podcast listeners will save 20% on their first order at my link, skin grip, Comm, slash, Juicebox, if you want a durable skin safe adhesive that lasts you want skin grip. This episode is sponsored by the tandem Moby system, which is powered by tandems, newest algorithm control iq plus technology. Tandem Moby has a predictive algorithm that helps prevent highs and lows, and is now available for ages two and up. Learn more and get started today at tandem diabetes.com/juicebox the episode you're about to enjoy was brought to you by Dexcom, the Dexcom g7 the same CGM that my daughter wears. You can learn more and get started today at my link. Dexcom.com/juicebox dexcom.com/juicebox, I mean, obviously he's very little right now, and the world's a different place, and kids are more accustomed to this. This is like, a thing. But have you given thought to like, how long would this go for? And at what point does he get an opportunity to say, like, I don't want people seeing this, or like, I mean, it's got to go on through your head, right,

Marley 3:02
for sure. And I get those comments. I used to get them a lot more, but I never did this for followers or for anything that Tiktok has brought Like, I literally posted a video of me put on his Dexcom, really, to just show my friends like, this is the life that I have to live. This is why I don't work anymore. This is why I can't go hang out with you right now, because I'm busy watching my 15 month old with diabetes. So when I post videos now, I'll never force him to sit on the couch and be like, film this video like that's just not how I am sure if we're outside and he's doing something crazy, I'm always having my phone out anyway, taking videos of him way before Tiktok, just because that's the kind of stuff I want to remember when he's acting like that. So when he gets older, if he ever tells me, like, I hate this, I hate that you did this, I will, you know, apologize to him. I will take anything down that he wants. But also, I feel like his story is reaching so many more people that aren't diabetic and don't have any family with diabetes and don't understand type one diabetes, and I feel like he has a purpose and a testimony that should be publicized. I don't tell every single thing about him. I don't tell, you know, I don't tell his numbers or any I don't do that type of stuff, because there is stuff that should be private. Like, yeah, there's stuff that should be private. He's my baby, but I do want people to understand I feel like people need to understand diabetes and toddlers so that he's safe in the real world. He can't even go to daycare. You know what? I mean, I

Scott Benner 4:39
spent a while of my life sitting in a car outside of a daycare so Arden could go to daycare.

Marley 4:44
Yeah, like, I can't even send my one year old to a daycare so I can go work. No, it's tough because he's not safe. And the reason he's not safe is because look at all these trolls on the barbie launch Facebook group, from Facebook page, commenting all those horrible. Things about diabetes, like, that's the reason he's not safe, because people think just don't give him the brownie, he'll be fine,

Scott Benner 5:06
yeah, right? Or that you've willfully done something wrong, and therefore you don't, I don't know what deserve, like, good health or something like that.

Marley 5:14
You know, you don't know who you'll be dealing with. Like, he's just not safe at this point, and he can't commute, yeah, he's starting to communicate, and he's starting to learn what feelings are in his body, and when he goes low, how he feels, or if he's high, he's starting to kind of feel that stuff, but he needs somebody to advocate and talk for him and teach him. And you know, people that don't understand this, ain't we

Scott Benner 5:38
get along. Because I feel like what you're telling me is you can't tell one head from somebody who's not a shit.

Marley 5:42
So exactly, you don't know if that daycare teacher was on that Barbie launch talking

Scott Benner 5:46
crap. Yeah, no, no, no, I hear I felt like that's what you were saying. And then as you were talking, that is definitely what she's saying. She's like, I can't tell the good ones from the bad ones. Just looking at

Marley 5:56
them and those comments were horrible. Did you see them? Horrible? I had to stop.

Scott Benner 6:00
I've been at this a long time. When the Barbie doll came out, I already knew exactly what was going to happen.

Marley 6:05
Like, I had to stop. I was like, it was horrible. I was feeling, yeah,

Scott Benner 6:09
you know, we do this thing in my Facebook group, like, when something like that happens, I wait about 12 hours, and then I'll put up a post, and I'll be like, hey, has anybody heard about this Barbie doll thing? Because, like, there's already been 1000 posts about it. And then I'm like, anyway, I'm joking. Can we stop posting about the Barbie doll please? Like, the whole page is, like, consumed with it. We all get it. And then what I don't say out loud, but I'm thinking, is, like, 54321, the crappy comments are gonna start.

Marley 6:35
Oh yeah. And they and they always are there, no matter where you go. Like, there's gonna be crappy comments. Well, you know, you just block them and keep on rolling.

Scott Benner 6:44
But then some people are gonna get insulted by it. Then some people are gonna get, like, zealous about it, like, we have to fix this. And I'm like, Are you ain't gonna fix this? Like, just

Marley 6:52
some lady told me, she said I had glasses and buck teeth when I was little, and they didn't make a Barbie for me. I said, Well, I wish my child had glasses and buck teeth over diabetes.

Scott Benner 7:03
That's a pretty interesting statement to make. Yeah. What a comparison. Oh, your child, that's what I said.

Marley 7:09
What a comparison, like buck teeth and glasses and there is Barbies with diabetes. I mean, with glasses.

Scott Benner 7:17
Like, what do you mean? You know, don't you feel like sometimes people think they're being deep and they don't realize they're just dumb.

Marley 7:25
I'm like autoimmune disorder that can kill you if you don't have insulin over glasses and buck teeth.

Scott Benner 7:30
Okay, those comments eventually become every level of people's political ideation. Like, right? Like, why don't we just keep making Barbie dolls? And you know, they don't need to be for anybody special. Like, did somebody say, like, what's gonna happen next? Is Barbie gonna be in a wheelchair or something

Marley 7:46
like that? Yeah, there was like, what's gonna be next crackhead Barbie? I'm like, What do you

Scott Benner 7:51
mean? Can I say two things that's not a child friendly doll? So I don't think that's going to be,

Marley 7:56
yeah, exactly. Barbies are for kids, right? But what people would say, or, Why are we Norman normalizing needles? I'm like, we can't help that. You have to inject insulin. Like, my toddler can't take that breathable insulin.

Scott Benner 8:13
Also, just don't buy the Barbie doll if you don't want it, like, exactly, I'll say you weren't buying one to begin

Marley 8:18
with, exactly. You're just here to troll like, that's why you're here. You're a 45 year

Scott Benner 8:22
old guy and who seems to have a little bit of free time to talk about a Barbie doll in the middle of the day, so I'm worried about you as well.

Marley 8:30
I posted some of the comments on my Instagram story, and somebody DM me back, and she was like, I hate old grumpy women.

Scott Benner 8:40
Listen, I've been at this a really long time, like I've seen every, every iteration of person, you know, from I don't know, just plain old crazy, to just plain old, mean, plain old drunk. I've seen plain old high. I've seen thinks they're smarter than the rest of the world, everywhere, just anything you can paint a picture of there's somebody out there, you know, who's like, oh, I have a thought. I definitely have to share, yeah, especially on Facebook. Listen, my Facebook group is awesome, but we also, oh yeah, and yeah, people don't troll in your Facebook group. Well, I mean, listen, some people do, and then they get pruned out. Because that's not it's there to support people. It's not there for you to complain. We're there to learn and teach. I think it would be interesting sometimes to have conversations with the people who have been, you know, asked to leave, or, you know, we're just, we're taken out of it. And you know for sure that because we have these, like, it's not done lightly, like nobody's just, like, kicked out of the group, yeah, group of people who look in, in say, like, here's what I'm seeing, here's what I'm seeing, here's what I'm seeing, here's what I'm saying. What do you think? Like, you know, like this. And in the end, it just becomes about, like it's proselytizing at the end, like somebody just thinks that there's a thing they believe that is so important that it supersedes everything else. It needs to be spoken about all the time. And if you don't agree with them, somehow you're a monster. Yeah, and that's the thing with the Barbie doll. Like, it's like, look, it's not like, what's next? A crackhead Barbie? It's, I don't like the way the world's going. People are soft. Like, that's what they really mean. Like, just get a regular Barbie doll.

Marley 10:14
Somebody said it's this new generation. Everybody's got to be included. And I get that thought also, but it is a big deal when my one year old's at the park and a kid runs up to him, why has he got that on his leg? Why is he wearing that on his leg? And you're having to explain to a five year old that your kid has a disease that could kill him, yeah, and he has to wear this.

Scott Benner 10:35
I also, by the way, I mean, I could sit here and make the argument the other way, if you wanted me to, like, maybe there's something to their argument of, like, just a Barbie doll's a Barbie doll. It doesn't need to have other i I'm sure that if you want to go sit with a bunch of your friends at dinner or something and have a an academic conversation about whether or not Barbie should have an insulin pump or not, like, go ahead and do it. But that's not the same as just getting online and just attacking somebody for it. Or, like, yeah, exactly, like, it's just not the time and place. Yeah, it's weird. Like, you know, like you're grown and these are kids. That's what, in the end, that's what I end up thinking. Like, no matter what level of like, whatever you want to call it, I see I sit there, and I'm almost jealous. I'm like, how do they have the time for

Speaker 1 11:19
this? Yeah, exactly like you are grown. I would love to have the

Scott Benner 11:23
kind of free time that it must take for you to jump online to complain about my diabetes podcast that you don't have to listen

Marley 11:30
to. Instead, I'm trying to catch up on sleep, because I was up with my son with his low blood sugar

Scott Benner 11:35
all night. Yeah, like I, how about I got a job? Yeah, exactly. There are things in this life I detest. I have never spent a second making sure that the person knew about it. Like, you know, like, if I go to a movie and I don't like it, I we walk out in the lobby and I go, Yeah, I didn't love it. That movie sucked. Yeah, exactly, I don't then try to figure out how to contact Warner Brothers. Yeah, exactly, exactly that part. Like, I don't think I'm ever going to completely understand that part of it.

Marley 12:05
I think it just, it literally just shows that type one diabetes isn't is so unknown to basically all humans on Earth, unless you deal with it or have somebody that you're close with that deals with it.

Scott Benner 12:20
Yeah, yeah, no. I mean, usually you do have to be involved.

Marley 12:24
You have to, you have to be involved with type one somehow, because to grasp it completely, yeah, truly, you don't understand what goes into it until you see it

Scott Benner 12:33
firsthand. And Marley, and I'll tell you this too, and then you're still not going to grasp it completely, like, I have it from my perspective. I'm going to just tell you right now, like, I don't want to burst your bubble. Live with this. Yeah, I'm gonna, I don't want to burst your bubble. But my daughter just had type one since she was two, and in a few days, she's going to be 21 wow, she goes through more stuff than I'm ever going to understand, for sure. Yeah, and some of it I'm not even aware of, like, some of it I know about and can't contextualize, and some of it I'm never going to be aware of. And in fairness to everyone else out there who has a kid with type one diabetes, I've spent the last 11 years talking to people trying to figure out how they feel, so that hopefully I might understand how my daughter feels a little better. And guess what, it doesn't really help that much you can manage diabetes confidently with the powerfully simple Dexcom g7 dexcom.com/juicebox the Dexcom g7 is the CGM that my daughter is wearing. The g7 is a simple CGM system that delivers real time glucose numbers to your smartphone or smart watch. The g7 is made for all types of diabetes, type one and type two, but also people experiencing gestational diabetes. The Dexcom g7 can help you spend more time in range, which is proven to lower a 1c The more time you spend in range, the better and healthier you feel. And with the Dexcom clarity app, you can track your glucose trends, and the app will also provide you with a projected a 1c in as little as two weeks. If you're looking for clarity around your diabetes, you're looking for Dexcom, dexcom.com/juicebox when you use my link, you're supporting the podcast, dexcom.com/juicebox head over there. Now this episode is sponsored by tandem Diabetes Care, and today I'm going to tell you about tandems, newest pumping algorithm, the tandem mobi system with control iq plus technology features auto Bolus, which can cover missed meal boluses and help prevent hyperglycemia. It has a dedicated sleep activity setting and is controlled from your personal iPhone. Tandem will help you to check your benefits today through my link, tandem diabetes.com/juicebox, this is going to help you to get started with tandems, smallest pump yet that's powered by its best algorithm ever go. Control iq plus technology helps to keep blood sugars in range by predicting glucose levels 30 minutes ahead, and it adjusts insulin accordingly. You can wear the tandem mobi in a number of ways. Wear it on body with a patch like adhesive sleeve that is sold separately, clip it discreetly to your clothing or slip it into your pocket head. Now to my link, tandem diabetes.com/juicebox, to check out your benefits and get started today.

It's still her thing, very personally and even like, like, look, I don't think you're ticked. Like, I don't if somebody wants to make a Tiktok, I'm certainly not against that at all. But like, trust me, we could have a 15 minute conversation where I could tell you five things that would make you shut it off right now, you'd be like, Oh, I didn't realize how that could go. Doesn't mean it's gonna go that way. And it's, it's for you to figure out, and it's for him to figure out. And it's the same way with the podcast. Like, I'm sure I said something last year I wouldn't say this year. Yeah, exactly. You're always learning, yeah, I'm sure I said something 10 years ago that if I listened to it now, I'd be like, Oh my God. Like, that was ridiculous. I'm sure I said something three weeks ago that I'll wish I didn't have said but, but that's not how we figure things out like, like you being willing to like, point that camera at something, or me being willing to like, open up this microphone, not plan ahead, say whatever comes into my mind, knowing I might be right. I might be wrong. I might be like, my tone my I may be tone deaf on something like, all the possibilities, but like you can't look at it in the moment, like, you don't judge that five seconds, or this day, you have to step back when it's over and say, like, this was a journey that this guy, Scott, went on making a podcast. And is it a net positive? It is then great. Like, that's it. Was everything right? No, was everything perfect. No, do 20, 3040, people a day send notes that say, my life's better today than it was before I found the podcast. Yes, yeah, time for us, if I have to say something and be wrong, or Thumper through something trying to figure something out, or misspeak, or whatever the hell happened, I don't know what happens. Like, you know, like you're just talking like and in the end, it's getting people to a better place and in mass. And so I say, good for you, and you're, I guarantee you're doing the same thing.

Marley 17:29
Yeah. I mean, I feel like we get comments daily, if not that, say, like, my daughter just got diagnosed. Like, give me tips. What works for you? What over patches do you like to wear? Like, what kind of food do you like to give him? And you know, if I can help him any bit, I do not know everything. I do not know a lot. I feel like, but I'll help them, or lead them into that, diapers and diabetes Facebook group and heartbeat.

Scott Benner 17:54
Yeah, no, it's a wonderful thing. Like, you have to look back before the internet and say, all those people who had diabetes had all these same thoughts, and it began and ended with them, and unless they were lucky enough to meet a great doctor who oftentimes has to have type one if you're going to get the kind of down deep that you need, yeah, or they were maybe lucky enough to go to diabetes camp and have a good experience, because, by the way, I can point you to 10 episodes of people who went to Diabetes camp had a bad experience, so, like, everything had to go really super right for them just to meet another person or 10 more people that have type one diabetes, to not feel quite so alone. Yeah, and you're telling me now that they can pick up their phone and no matter how their brain takes something in, like, whether it's an hour long conversation between you and I, or it's a 22nd long video that somebody puts up on Tiktok like there's something out there for you to help you feel better about this and give you some information or even a direction to look into, right? There's you can't tell me that's a bad thing.

Marley 18:53
I think that's how Tiktok has saved me, because I don't know anybody that deals with being a mom of a type one diabetic toddler like no one in remotely close to me that I've ever seen this happen to so when I got on social media and I met these moms that have dealt with their child like I have a friend, her son's name is Miles, and she posts his life. And they have a diabetic alert dog. He got diagnosed at 10 months old, and anytime I need a question answered, she is there to help me. And he's now five years old, and she's dealt with it for this long now, and it just helps you feel seen, and helps you learn things from parents that have dealt with this that doctors and diabetic educators just don't understand.

Scott Benner 19:38
Yeah, there's a lot of good that's going to come out of it. And, you know, like, I said, like, even if you said something that was completely batch crazy. Like, people are smart enough to go, well, I'll ignore that part. The world's become like, a place where information is available and it's available the way you the way your brain works, even, which is even better. Like, sometimes people say to me, like, Hey, listen, I'd like. Have to listen, but I don't, I'm not good with audio, yeah? And I'll say, Well, we, you know, we have transcripts, if you think that would help. And a lot of, like, way more people, Marley, like, when Listen, when somebody told me, I need a transcript from the podcast. I was like, read it, yeah? I was like, What the hell? Like, you know, because that's not a way I would want to do it, yeah, but I heard them, and I was like, Here you go. Like, here's what I can offer you. They're AI generated transcripts. They're not perfect, but they're way better than nothing, and a lot of people read the podcast. So like, I'll tell you something that even I learned this week. I have about think I have 11 group experts who are just people in the Facebook group who help, you know, people answer questions. They'll say, like, Hey, here's an episode you might want to try, or here's a link that might help you, like, you know, trying to help people with with their questions. And this one person who is dear to me told me the other day, I don't listen to the podcast, and I'm like, what? I said, No. And she goes, No, I read it. And I was like, what? Like, I've known you for years, like, you don't listen to podcasts. She says, I don't think I've heard three episodes of it. That's so funny. Yeah? And to me, like, that's a thing that I would have never met things differently, yeah, yeah. So it's awesome. Like, and by the way, I'm not good at short form content. The way I do it. This is how I do it. Yeah, I can make a Tiktok. Nobody's gonna care about it.

Marley 21:26
I'm sure they would, honestly, because you have some stands I have,

Scott Benner 21:30
well, yeah, but I'm, I don't think I'm good at it. Is what I'm saying. Yeah, I know what you mean. Like, even if you listen to me talk about anything, like even Barbie I mean, let's be fair. I need 300 words to say what I'm gonna

Marley 21:41
say? Yeah, I feel you. I feel you totally, like, a little bit more time.

Scott Benner 21:44
Yeah, people are not, like, up for that on that platform? No, they want it quick and fast. No kidding, right? And even on YouTube, like, I don't want to, like, I mean, you should see me right now. I'm sitting here sideways. My foot's on my desk. This would not be interesting for you to watch, like, while we were talking, right? I'm good at, I'm good at the audio thing. I don't know. I just, I think there's so many different ways to reach people, and I'm grateful for anybody who's out there trying to do it. Now, for some people, it ends up becoming like a business, I know for me, like I have ads on my podcast. Like, it's certainly a thing that I do every day and spend, I mean, the better part of 1516, hours a day on sometimes, I'm wondering about you if, and you don't have to tell me, but I'm interested. Like, I think everybody thinks on Tiktok that you're all getting rich. But like, can you explain to people getting rich? Can you explain to people how it works? Because I actually think I know the truth, but I'd love it if you told somebody

Marley 22:36
so on Tiktok, I think you have to have 10,000 followers to get in the Creator rewards program, but you only get paid off new views, okay? And your videos have to be over a certain amount of time, okay, so if

Scott Benner 22:51
you somehow got to like, 3 million of your 4 million,

Marley 22:55
those viral, like those videos that go viral, yeah, you might see a few $100 you don't get, right? So you're not getting paid 1000. Like, it's just not, like, not what people think. No, yeah, and I'm not posting him to do that. Like, no, no, I don't money that we've made off tick tock. We're actually taking a huge family vacation next year for Bain. Like, we're doing this stuff for Bain. Oh, that's nice. So you're telling me that money back for Bain, yeah?

Scott Benner 23:22
So you're telling me that the money you've made from Tiktok is going to take your family on a nice vacation, yeah,

Marley 23:27
we're going on, like, this really nice vacation, a once in a lifetime opportunity for him, and it's something that he'll cherish and remember. I mean, he might not remember it because he's not even too but I'll remember it, and he'll have pictures and, you know, it's just that type of money's for him. If he gets brand deals, it's for him,

Scott Benner 23:44
right? And does that happen? Do people reach out and want to, like, do like a brand deal with you?

Marley 23:49
Yeah, he's an ambassador for a lots of different companies. Like, I don't know if you want me to say I'm on here. Honestly, he's an ambassador for, like, Spy belt. He does like some bars that, like, Wait, he loves Dino bars. He loves that zip bars. Like, they'll send him, they'll send him little snacks and spoil him. But no, we're not, like, rolling like, I still work. Yeah, no, I have a job.

Scott Benner 24:15
Yeah. I just think that people think that you're just like, oh my

Marley 24:18
god, Beatties is expensive. Like, you got to have jobs,

Scott Benner 24:22
and even if a company were to come along and offer you something for a video, like, I don't want an actual number, but we're talking about a few $100 like, right? Like, it's not going to be crazy, right, right? It's they're not. Like, hello, here is a pile of money. Here's $100,000

Marley 24:39
scam your your followers and tell them that this is awesome, like, and I'm not that type of person

Scott Benner 24:44
anyway. Yeah, no, it doesn't work that way. Is what?

Marley 24:47
Unless I love something, and that's something we use every day. No, like, I'm not gonna post that

Scott Benner 24:54
I even like one time some I said to somebody that I worked with, I was like, What are you paying those Tiktok. Years, and when they told me, I was like, Oh, I'm like, oh, okay, never mind. Yeah, I didn't understand exactly what was happening there either. I thought, like, bigger ideas and not the case.

Marley 25:09
So my goal for Bain is not necessarily to be Tiktok famous, or whatever you want to call it. It's more like, I just want, like, How People magazine put us in their magazine, and they put out an article about us, like, I just want people to realize that this is something that can happen to your toddler, and this is how we have dealt with it as a family, and this is how my son has dealt with it up until this point. And this is how, yeah, you know, my view of it is.

Scott Benner 25:37
It's exactly why I started that blog. I was like, I wonder if I could just raise more awareness around

Marley 25:41
this. Yeah, it has nothing to do with money. They could take the money away and I still would post tomorrow.

Scott Benner 25:46
Like, I have to tell you that this morning, I got a text and someone said, Could you do a one hour zoom at a diabetes camp? Like, could you zoom in for an hour and talk to people? And I always said, I said, Absolutely. I said, yes right away. Then it turns out the date overlapped with something else that I'm doing, albeit touched by type one that exact same day. And I said, Oh, I'm so sorry. I'm speaking that day already. I'm like, I don't see how I could carve out an hour from that day to do this, but I actually sat and thought about it. I thought like in the middle of one of the most busy days of my life, could I find an hour and do another thing for somebody? And I couldn't. So I said, is there another date I could do it? Yeah. She said, Well, maybe you could do it the next day. And then I thought, like, maybe I could jump on a plane and fly to that thing that night and then be there the next day for it. And by the way, that would have killed me. I'm old sleep, and I'm trying to think about how I could do it. And I could do it? And I said, Well, I could definitely zoom in the next day. And then she's like, well, we have another one in a few months. And I said, I'll definitely do that one for you. Doesn't interrupt anything. She goes, That's awesome. Thank you. Then she said, how much will we have to pay you? And I was like, for what? And she goes, like, well, is there's a speaking fee. And I was like, I mean, like, you just want me to jump on a zoom for an hour? And she goes, yeah. I'm like, I mean, I'm an adult, like, I'd just be happy to do that for you. Yeah? And it was like, really? I was like, don't get me wrong. I said, if you want to, like, dump a pile of money on me, I'll be happy to take it. I'm like, I'm not gonna tell you, No, yeah, but I'm not gonna shake $400 out of here for this. That's ridiculous. I was like, just tell me when it is and I'll make time. And I'll do it. I don't think people would think that, you know,

Marley 27:23
they wouldn't think that they wouldn't, especially the type of people that don't have your best interests or don't believe in you as a person, or what you're doing, that's the first thing, like, you're using your child's disability for money. No, I'm not, like, I never did this for money.

Scott Benner 27:39
I can't imagine that anybody could start this and think that they were going to like that. It was going to

Marley 27:44
work out again, rich off diabetes, because it ain't me. It's like Eli Lilly, you know what I mean?

Scott Benner 27:49
Well, listen, I also, I don't, I'm not crying poor. Like, I have a pretty big podcast, and I have a lot of sponsors, and I do make a living from it. Like, there's no doubt about that. Yeah, there'd be an argument to be made that if I, you know, assigned a reasonable dollar value to all the people that have been helped by it, that I'm probably not making very much as much as you should. Yeah, exactly. I don't assign a value to it. It is what it is. And by the way, it's not going to last forever, and

Marley 28:15
it's your it's a greater purpose, like, that's your testimony. That's how you're helping people.

Scott Benner 28:19
The word legacy has been used to me a couple of times in the last couple of weeks. I never really never really thought about that way, but I feel like, for sure, you have a legacy. Feel good about that. You know, also, it's social media, it's gonna just stop one day. Like, it's not a job that, like, I make a nice living, right? Like it's it's comfortable for me, and it's a thing. By comfortable, I mean, it's an amount of money that pays my bills, that allows me to save a little bit that, like, you know, makes me feel like that my time is being compensated in a way that I'm comfortable with. Like, I could go get a job and make more money, yeah, for sure, I kind of feel the same way, right, so, but I'm doing this, like this, but also, like, try to be like, a little like, understanding this could just stop, yeah? Like, what am I gonna do? You know what I mean, what am I gonna send out a resume that says, hey, I made a really popular podcast. Yeah, people are gonna go, we don't care about that. Yeah? Like, I need somebody that knows how to build this wall or knock this thing over do this thing. Like, I can't just go get another job, and, by the way, just starting another podcast that's over too. Like, even that was, like, it's a moment in time. Like, right now, you don't start a new podcast and get to where I am unless you're, like, famous already, like, yeah, like, you've built this from the ground up, and I happen to have been in a window when that was possible. Yeah, that possibility doesn't, I don't want to break people's hearts, but that possibility doesn't exist. Possibility doesn't

Marley 29:43
exist anymore. Yeah, it's hard even I feel like, not that we're tick tock famous or, you know, we're not like the OGS, but there I'll see new kids popping up on tick tock. I feel like, every day, I'm like, I don't know if they're just doing this, you know, to spread awareness or. They doing it because they see other kids on here, I don't know, like, I feel like every day there's new ones. And I'm always commenting like, Hey, welcome to Tiktok. I'm glad you're

Scott Benner 30:08
here. Yeah, now you got to just invite everybody in. And it shakes out in the end, like, there are some people who are just think there's money there, like they see, yeah,

Marley 30:16
that's the kind of thing I'm trying I'm trying to figure out not that I even care. I'm like, are you doing this because you think your child will bring in money? Because I promise you, like, I'm not rolling $10,000 a month. Like, it's just not like that.

Scott Benner 30:27
I mean, if you want a couple of free bars, remember, listen, I want to be fair. Let me be honest. Here I am looking at an absolutely free freaks of nature stick for my face, sunscreen. I got it absolutely free. AG, one sent it to me. There's almost an ounce of it in here, and I did not have to pay for it. There you go. I I'm rolling. Oh, and you know what? Hold on a second. I do think I have here. I'll open this right now. I've had this for two weeks. I haven't opened it. Omnipod sent me this. Let me see what's in here. I'm seriously opening

it right now. It is. I have five copies of the DIA Sonic, sound of strength, Marvel, comic book from Omnipod. They doing like a collab with Marvel. They did, yeah, all right, I'll give these away. You know, I was gonna sell them and buy a house, but I'll give them away. I'll give them away instead. Also, running your own business is not a lot of fun.

Marley 31:28
So I feel like that's that's more of a perk on being social media than not. Like companies like to, like, send you little thing stuff, yeah. Like, they'll send Bane like, cookies or like, I don't know clothes like they I love to dress him. It's probably not. I live in Mississippi. I don't know if you can hear my

Scott Benner 31:48
accent, but you're a delightful Marley. It's the only thing I hear. But go ahead, we put

Marley 31:53
smart like, not all parents, but I dress Bane like, in smocked outfits and cute, very expensive outfits. Like, that's just what we do in the south. And all these cute boutiques are like, I'll send Bane some clothes. I'm like, Yeah, send them some clothes. I don't want to pay $50 an outfit. Like, send it. I'd be happy to take that from you. Yeah? Like, I'll post that on tick tock. I don't care.

Scott Benner 32:16
I was at friends for life last week. I got a tandem t shirt, a Dexcom t shirt. I took one of those Lenny the lions from the Medtronic table. That was, by the way, they're kind of awesome. I think I took a teddy bear from Abbott.

Marley 32:30
You got to get everything, yeah? I also

Scott Benner 32:33
gave away two Apple Watches while I was there. So I think I'm in the net.

Marley 32:36
I'll try to go next year. Oh, it was really great.

Scott Benner 32:39
It was my first time, it was really awesome. Yeah, so, but yeah. I mean, look again, I'm not I have no trouble saying, like, there's ads on this episode I got paid for Yeah. Like, yeah, exactly. But hopefully you got something out of it that makes it feel like you know

Marley 32:56
for sure. And I'm telling you, like, whenever bang got diagnosed, anytime you ask a question, like, how am I going to do this? Or, I think the first thing I said on diabetes and diabetes was like, I still breastfeed my child. He just got diagnosed with diabetes. How do I do this? Like, the doctors don't know how I'm supposed to dose for this. What am I supposed to do? And everybody on that group was telling me what to do, and then they'd be like, you need to buy a sugar pixel. You need a you need to join the Juicebox podcast. You need to listen to these episodes. Like people like you are the go to I feel like, for most people like you need to, you need to listen to this. You need to get in this pot, this group.

Scott Benner 33:35
Yeah, I'm glad to know that. So, you know, I'll finish with this. I think this was interesting. You mentioned earlier, there was like, something on you guys in People Magazine, and people posted it inside the Facebook group. And I was like, Oh, that's awesome. And then you, you answered, and I was like, Oh, my God that ladies in here. Like, that's how it makes me feel, ladies, yeah, I'm like, oh look, because I don't know who you are. Like, you just you're somebody's mom at that point. Like, I'm not sure. And then people are like, actually, there's like, a fake Facebook group for her. So this so people started reporting you as, like, not being you. This hilarious. Oh my gosh, that I just sent you a note. I just sent you a note, right? I was like, Are

Marley 34:11
you did you're like, is this real? Yeah, I think you said, Is this real? Please don't

Scott Benner 34:15
mess with me. I don't have time. Like, are you the real person? So

Marley 34:18
whenever before Tiktok, went to that fake band thing in January or whatever, like it was gonna get banned and didn't or whatever. That's when people on Tiktok started transitioning to like Instagram, I feel like so I made an Instagram for Bain. I never used it, and it never got banned or whatever. So we just kept on posting on Tiktok, and then one day on Facebook. I was on my personal Facebook that I've literally had since elementary school. Video came up of me and vain, and it was like a video of our tiktoks with the caption, and the user was like, Marley Brandon or something, and I'm like, I didn't make a Facebook. I don't think like, Did I make a Facebook when I made Instagram? Did it like make a Facebook? Book. So I go look the page has like 30,000 followers, millions of views, and has basically all our videos from the past three months on there with all millions of views. Yeah, and it's not you, so they're rolling in the money, I'm sure, from Facebook views, honestly. So I reported it, yeah? So I report it for copyright, because, sure, apparently it's very hard to get in touch with Facebook, because I could not get in touch with anybody from Facebook, yeah, but I found out from Reddit how to like, basically get them for copyright, and had to support all this stuff with, like my Tiktok page or videos or whatever. And it finally got taken down. And then that's when I just made a Facebook for us, and I just pay for the blue check mark, because if you pay for the blue check mark, they'll take down anybody that's like frauding you or like scamming

Scott Benner 35:53
your name. Oh no kidding. I didn't realize that. So it's worth the $15 I pay so little attention to

Marley 36:01
all this stuff that was my real Facebook, like my facebook I've had since elementary in your group, and I joined your group, like, probably the week he got diagnosed. I'm not really active, like commenting, but I do read every single day, like, different things that pop on my Facebook, and somebody posted that article, and I was like, hey, that's me, and

Scott Benner 36:23
basal, that's so cool. No, I and I was happy that it was actually you. And then this is how this got set up. So anyway, I think it's great anybody who's willing to, you know, share how they feel or what they're experiencing. I think it just helps people immensely. You do have to have a thick skin, so I hope you're okay. I noticed this morning, because I get an email when, like, new stuff pops up for the podcast, and I clicked on the latest one. It's like, the Juicebox podcast is a fantastic resource for anyone living with type one diet. And it goes on, it's very lovely, right? And then I look at the next one, and the next one's like, I've seen several people in online groups recommend this podcast, and I've tried to listen a few times and I didn't get any useful information. The problem is, Oh, good. This person's listened at least three times, so they know it's too long. There's too many episodes, and frankly, the host seems to talk about himself a lot, and, God, annoying. I don't have time to sift through all that casual chatter to find the useful information. Now there's a person who they don't realize the bigger picture, which, by the way, it's cool if you don't like me, or if you think I'm annoying, or whatever, I would assume not everybody likes it. Yeah, like everybody likes everybody, or that everybody's everybody's cup of tea. But what that person didn't realize was is that the the information that they're being told about is, like the Pro Tip series, or the bold beginning series, or, like those series of you know stuff. We just put out a bunch of mental health stuff, again, with Erica and like that kind of stuff. Like, that's what people are talking about. But why does it still exist so somebody can click on it? Because I also make a podcast like, where you and I are talking like this, like this, yeah, these conversations beyond offering people who wanted community, which is obviously not what this person was looking for, and they were very brave not to use their real name in the review, but that's not what this person was looking for, but it was there. They just didn't figure it out that it was there, or look in like it has a lot of episodes. That's how it stays popular. Because it's popular is why people have the time to build out a 25 episode series for the Pro Tip series, or like like or how I'm able to put the time into making sure that like Erica can come on and talk about a bunch of different mental health issues and stuff like that or that. We you know how we can spend months culling together people's thoughts on what do I wish my doctor would have told me when I was diagnosed that we can put the Grand Round series, it has to be a viable thing so that it supports the effort that needs to go in to get the information that this person obviously wanted but couldn't find. And what they're mad at isn't me. They don't realize what they're mad at is the way podcast apps are set up. Like, yeah, I can't put it all together. Also, if they would have hung out a little longer, they would have realized that I just started a second podcast where only the series are going to run in order. Oh, that's awesome, yeah. And two weeks later, this person would have heard an ad for that and then known where to go to find it, yeah.

Marley 39:20
But instead they had to come to Facebook.

Scott Benner 39:23
Try to imagine that you've tried like people say, Hey, this is a nice podcast. Like, you see all these people saying something nice about it, and then it's not your experience in a brief section of time. And your first thought isn't, like, I wonder what I'm missing that all these other people are seeing. The first thought is, oh, well, this podcast sucks. And I'm like, okay, like, I don't know how people's minds work that way. Like, if somebody tells me over and over again, like, something's really valuable to them, and I go, look at and I go, it's not valuable to me. I don't think, Oh, the thing's not valuable. I think I don't intersect well with it, yeah.

Marley 39:59
Or, like. Maybe that episode wasn't for me. Maybe I should go to a different series.

Scott Benner 40:03
Maybe I just hit the wrong thing. There's like, yeah, I find that super interesting.

Marley 40:08
Like, if I went in to your podcast and looked up Omnipod stuff that doesn't pertain to us in our life, like, No, I'm not gonna take anything from that, yeah. Also, I'm not gonna come to Facebook and complain about that episode.

Scott Benner 40:21
I mean, that's what we talked about earlier, yeah, that's just, like, the I now have time to go complain about it. Like, just, it's not for you. Like, just go ahead. That's okay, yeah, it's awesome. Like, just don't like it and move on. Yep. I love that TV show. What's it called the bear? I sometimes I tell people, and they go, I don't like that at all. And I go, okay, yeah, it's awesome. You go watch what you like. I just thought that was funny because it literally, like, I opened up my email here as we were getting ready to get done, and you just see, like, these just lovely, like, lovely things. And then the next one's just like, this sucks. I'm like, okay,

Marley 40:58
like, I promise you it, there's more people that love it than hate it.

Scott Benner 41:02
Also, it's cool, if you think it sucks, and if you do, then it sucks. Like, that's fine. Like, I still don't

Marley 41:08
know, it's not a big deal. Yeah, the world still keeps rolling.

Scott Benner 41:11
Yeah. Anyway, it's very cool. I'm glad you did this. I lose you a ton of success with everything you're doing, and with Bane obviously, it's going to be a long, ever changing process raising a kid with type one, there's going to be things that come up that you never expected. My best advice to you would be to try to stay flexible and do your best to try to see Bain's side of it while you're going because there's a balance. I've been thinking a lot about this lately. There's a balance between healthy and harmonious. It's not always easy to make those decisions. So yeah, for sure, and they appreciate you for having me. Yeah, no, it was really lovely. I love that you said. I don't know if you I'm sorry

Marley 41:51
for my soup, sorry for my dog, what you're sorry for? What my super country accent? I'm sure I probably sound like a hick, but I promise you, I'm not.

Scott Benner 41:59
No, not at all. It's, it was, it's, it's delightful. I thought it was lovely. I was gonna say to you, I appreciate you saying. I don't know if you can hear my accent. That was maybe the funniest

Marley 42:08
thing. You don't realize how contour you sound until you hear yourself. You're like, oh my goodness, I sound like

Scott Benner 42:15
that. I don't know how northeast I sound until somebody points. You just

Marley 42:19
sound like a very like well spoken American, do I

Scott Benner 42:23
really, that's crazy? Yeah, to me, you do well you are country. Then if you think I'm well spoken, but I'm country, I know I am. There's nothing wrong with that. Qualms with where you live, it would be the humidity, not your accent.

Marley 42:35
Yeah, the humidity is horror. Like, I don't know what I'm gonna do with this heat and bane's blood

Scott Benner 42:40
sugars, they've been horrible. Yeah, no, I couldn't live like that. The humidity right now is 80% Oh, no, no, no, no. I would, I would, I would miss 87 degrees outside. I would have a podcast where I just complained about the humidity.

Marley 42:53
So it's horrible. And Bane went from like a normal blood sugar to 40 double arrows down.

Scott Benner 43:01
Wow, wow. Yeah. Because what happens? It gets real hot and then overheat. Yeah, just people.

Marley 43:06
People online keep telling me, when they go outside in the heat, they go up, but he tanks.

Scott Benner 43:11
It's funny how, it's funny how, like, you make me think about, some people say that about a shower, like, I get in the shower and my blood sugar goes right up. And then other people say, I get in the shower, my blood sugar tanks.

Marley 43:23
Yeah, you just never, I guess it just depends on the person. But he always tanks,

Scott Benner 43:27
yeah. You know, you could break down every little bit of this and have like, long conversations about it. Like, I've heard people say, get, you know, you heat up and like, you're, I don't even I'm, this is not gonna be technical, but like, you know, your vessels kind of, like, expand, and then maybe that helps, like, move the

Marley 43:42
insulin more. I've heard that too, like, it makes your insulin hit harder or something.

Scott Benner 43:47
I've also heard people say, like, I just get in the shower and I relax. My my anxiety goes away, my stress goes away, and I think that I have a bunch of insulin that's like fighting with the anxiety, it goes away. I've heard people say, I get in the shower and my body heats up and my blood sugar goes up. It goes down. Like, who the I mean, you know, good luck. It ain't easy.

Marley 44:03
That's part of like, What sense does diabetes ever makes? It doesn't make any sense ever.

Scott Benner 44:09
No, no kidding. Okay, all right. Well, Marley, this was awesome. I appreciate you doing this. Thank you for taking the time of people want to check you out on Tiktok. It's m, A R, L, E, E, B, R, a n, d o, n, that right, yep, yep, okay, hold on one second for me, please. Okay.

Dexcom sponsored this episode of The Juicebox podcast. Learn more about the Dexcom g7 at my link, dexcom.com/juicebox dexcom.com/juicebox, did you know that skin grip has donated over $100,000 in scholarships to help people with diabetes? The people at skin grip, they know what it's like to live with type one diabetes. They know what it's like when your devices fall off at the absolute worst. Time, and they're here to help. Skin grip.com/juicebox save 20% off your first order when you use my link. That's what you get for being a Juicebox podcast listener. The podcast you just enjoyed was sponsored by tandem diabetes care. Learn more about tandems, newest automated insulin delivery system, tandem Moby with control iq plus technology at tandem diabetes.com/juicebox. There are links in the show notes and links at Juicebox podcast.com.

Okay, well, here we are at the end of the episode. You're still with me. Thank you. I really do appreciate that. What else could you do for me? Why don't you tell a friend about the show or leave a five star review? Maybe you could make sure you're following or subscribed in your podcast app, go to YouTube and follow me, or Instagram. Tiktok. Oh gosh, here's one. Make sure you're following the podcast in the private Facebook group as well as the public Facebook page you don't want to miss. Please. Do you not know about the private group? You have to join the private group. As of this recording, it has 51,000 members in it. They're active, talking about diabetes, whatever you need to know. There's a conversation happening in there right now, and I'm there all the time. Tag me. I'll say hi. My grand rounds series was designed by listeners to tell doctors what they need, and it also helps you to understand what to ask for. There's a mental wellness series that addresses the emotional side of diabetes and practical ways to stay balanced. And when we talk about GLP medications, well we'll break down what they are, how they may help you, and if they fit into your diabetes management plan. What do these three things have in common? They're all available at Juicebox podcast.com up in the menu. I know it can be hard to find these things in a podcast app, so we've collected them all for you at Juicebox podcast.com if you're looking to meet other people living with type one diabetes, head over to Juicebox podcast.com/juice, cruise. Because next June, that's right, 2026, June, 21 the second juice Cruise is happening on the celebrity beyond cruise ship. It's a seven night trip, going to the Caribbean. We're going to be visiting Miami. Coke, okay? St, Thomas and st, Kitts, the Virgin Islands. You're gonna love the Virgin Islands. Sail with Scott and the Juicebox community on a week long voyage built for people and families living with type one diabetes. Enjoy tropical luxury, practical education and judgment, free atmosphere. Perfect day at cocoa Bay. St, Kitts, st, Thomas five interactive workshops with me and surprise guests on type one, hacks and tech, mental health, mindfulness, nutrition, exercise, personal growth and professional development, support groups and wellness discussions tailored for life with type one and celebrities, world class amenities, dining and entertainment. This is open from every age you know, newborn to 99 I don't care how old you are. Come out. Check us out. You can view staterooms and prices at Juicebox podcast.com/juice. Cruise. The last juice cruise just happened a couple weeks ago. 100 of you came. It was awesome. We're looking to make it even bigger this year. I hope you can check it out. The episode you just heard was professionally edited by wrong way recording, wrong way recording.com,

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