#1657 Bain’s Mom Marlee (TikTok) - Part 2
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Scott talks with Marley, mom to one-year-old Bane, diagnosed after DKA and a life flight. From ICU to CGM and Mobi, she shares hard-won reality, faith, and growing TikTok advocacy.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends, and welcome back to another episode of The Juicebox podcast.
Marley 0:14
Hey, my name is Marley. I have a type one diabetic, one year old son named Bane. And you may have seen us on Tiktok or Instagram and now even Facebook, but we just post our life as a family handling type one diabetes and our toddler son, and just go with the flow and do whatever.
Scott Benner 0:39
This is part two of a two part episode. Go look at the title. If you don't recognize it. You haven't heard part one yet. It's probably the episode right before this in your podcast player. If this is your first time listening to the Juicebox podcast and you'd like to hear more, download Apple podcasts or Spotify, really, any audio app at all, look for the Juicebox podcast and follow or subscribe. We put out new content every day that you'll enjoy. Want to learn more about your diabetes management. Go to Juicebox podcast.com up in the menu and look for bold beginnings, the diabetes Pro Tip series and much more. This podcast is full of collections and series of information that will help you to live better with insulin while you're listening, please remember that nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. Today's podcast is sponsored by skin grip. Your devices, they can fall off, but with skin grip, they stay secure for the full life of the device. Juicebox podcast listeners will save 20% on their first order at my link, skin grip, Comm, slash, Juicebox, if you want a durable skin safe adhesive that lasts you want skin grip. This episode is sponsored by the tandem Moby system, which is powered by tandems, newest algorithm control iq plus technology. Tandem Moby has a predictive algorithm that helps prevent highs and lows, and is now available for ages two and up. Learn more and get started today at tandem diabetes.com/juicebox the episode you're about to enjoy was brought to you by Dexcom, the Dexcom g7 the same CGM that my daughter wears. You can learn more and get started today at my link. Dexcom.com/juicebox dexcom.com/juicebox, I mean, obviously he's very little right now, and the world's a different place, and kids are more accustomed to this. This is like, a thing. But have you given thought to like, how long would this go for? And at what point does he get an opportunity to say, like, I don't want people seeing this, or like, I mean, it's got to go on through your head, right,
Marley 3:02
for sure. And I get those comments. I used to get them a lot more, but I never did this for followers or for anything that Tiktok has brought Like, I literally posted a video of me put on his Dexcom, really, to just show my friends like, this is the life that I have to live. This is why I don't work anymore. This is why I can't go hang out with you right now, because I'm busy watching my 15 month old with diabetes. So when I post videos now, I'll never force him to sit on the couch and be like, film this video like that's just not how I am sure if we're outside and he's doing something crazy, I'm always having my phone out anyway, taking videos of him way before Tiktok, just because that's the kind of stuff I want to remember when he's acting like that. So when he gets older, if he ever tells me, like, I hate this, I hate that you did this, I will, you know, apologize to him. I will take anything down that he wants. But also, I feel like his story is reaching so many more people that aren't diabetic and don't have any family with diabetes and don't understand type one diabetes, and I feel like he has a purpose and a testimony that should be publicized. I don't tell every single thing about him. I don't tell, you know, I don't tell his numbers or any I don't do that type of stuff, because there is stuff that should be private. Like, yeah, there's stuff that should be private. He's my baby, but I do want people to understand I feel like people need to understand diabetes and toddlers so that he's safe in the real world. He can't even go to daycare. You know what? I mean, I
Scott Benner 4:39
spent a while of my life sitting in a car outside of a daycare so Arden could go to daycare.
Marley 4:44
Yeah, like, I can't even send my one year old to a daycare so I can go work. No, it's tough because he's not safe. And the reason he's not safe is because look at all these trolls on the barbie launch Facebook group, from Facebook page, commenting all those horrible. Things about diabetes, like, that's the reason he's not safe, because people think just don't give him the brownie, he'll be fine,
Scott Benner 5:06
yeah, right? Or that you've willfully done something wrong, and therefore you don't, I don't know what deserve, like, good health or something like that.
Marley 5:14
You know, you don't know who you'll be dealing with. Like, he's just not safe at this point, and he can't commute, yeah, he's starting to communicate, and he's starting to learn what feelings are in his body, and when he goes low, how he feels, or if he's high, he's starting to kind of feel that stuff, but he needs somebody to advocate and talk for him and teach him. And you know, people that don't understand this, ain't we
Scott Benner 5:38
get along. Because I feel like what you're telling me is you can't tell one head from somebody who's not a shit.
Marley 5:42
So exactly, you don't know if that daycare teacher was on that Barbie launch talking
Scott Benner 5:46
crap. Yeah, no, no, no, I hear I felt like that's what you were saying. And then as you were talking, that is definitely what she's saying. She's like, I can't tell the good ones from the bad ones. Just looking at
Marley 5:56
them and those comments were horrible. Did you see them? Horrible? I had to stop.
Scott Benner 6:00
I've been at this a long time. When the Barbie doll came out, I already knew exactly what was going to happen.
Marley 6:05
Like, I had to stop. I was like, it was horrible. I was feeling, yeah,
Scott Benner 6:09
you know, we do this thing in my Facebook group, like, when something like that happens, I wait about 12 hours, and then I'll put up a post, and I'll be like, hey, has anybody heard about this Barbie doll thing? Because, like, there's already been 1000 posts about it. And then I'm like, anyway, I'm joking. Can we stop posting about the Barbie doll please? Like, the whole page is, like, consumed with it. We all get it. And then what I don't say out loud, but I'm thinking, is, like, 54321, the crappy comments are gonna start.
Marley 6:35
Oh yeah. And they and they always are there, no matter where you go. Like, there's gonna be crappy comments. Well, you know, you just block them and keep on rolling.
Scott Benner 6:44
But then some people are gonna get insulted by it. Then some people are gonna get, like, zealous about it, like, we have to fix this. And I'm like, Are you ain't gonna fix this? Like, just
Marley 6:52
some lady told me, she said I had glasses and buck teeth when I was little, and they didn't make a Barbie for me. I said, Well, I wish my child had glasses and buck teeth over diabetes.
Scott Benner 7:03
That's a pretty interesting statement to make. Yeah. What a comparison. Oh, your child, that's what I said.
Marley 7:09
What a comparison, like buck teeth and glasses and there is Barbies with diabetes. I mean, with glasses.
Scott Benner 7:17
Like, what do you mean? You know, don't you feel like sometimes people think they're being deep and they don't realize they're just dumb.
Marley 7:25
I'm like autoimmune disorder that can kill you if you don't have insulin over glasses and buck teeth.
Scott Benner 7:30
Okay, those comments eventually become every level of people's political ideation. Like, right? Like, why don't we just keep making Barbie dolls? And you know, they don't need to be for anybody special. Like, did somebody say, like, what's gonna happen next? Is Barbie gonna be in a wheelchair or something
Marley 7:46
like that? Yeah, there was like, what's gonna be next crackhead Barbie? I'm like, What do you
Scott Benner 7:51
mean? Can I say two things that's not a child friendly doll? So I don't think that's going to be,
Marley 7:56
yeah, exactly. Barbies are for kids, right? But what people would say, or, Why are we Norman normalizing needles? I'm like, we can't help that. You have to inject insulin. Like, my toddler can't take that breathable insulin.
Scott Benner 8:13
Also, just don't buy the Barbie doll if you don't want it, like, exactly, I'll say you weren't buying one to begin
Marley 8:18
with, exactly. You're just here to troll like, that's why you're here. You're a 45 year
Scott Benner 8:22
old guy and who seems to have a little bit of free time to talk about a Barbie doll in the middle of the day, so I'm worried about you as well.
Marley 8:30
I posted some of the comments on my Instagram story, and somebody DM me back, and she was like, I hate old grumpy women.
Scott Benner 8:40
Listen, I've been at this a really long time, like I've seen every, every iteration of person, you know, from I don't know, just plain old crazy, to just plain old, mean, plain old drunk. I've seen plain old high. I've seen thinks they're smarter than the rest of the world, everywhere, just anything you can paint a picture of there's somebody out there, you know, who's like, oh, I have a thought. I definitely have to share, yeah, especially on Facebook. Listen, my Facebook group is awesome, but we also, oh yeah, and yeah, people don't troll in your Facebook group. Well, I mean, listen, some people do, and then they get pruned out. Because that's not it's there to support people. It's not there for you to complain. We're there to learn and teach. I think it would be interesting sometimes to have conversations with the people who have been, you know, asked to leave, or, you know, we're just, we're taken out of it. And you know for sure that because we have these, like, it's not done lightly, like nobody's just, like, kicked out of the group, yeah, group of people who look in, in say, like, here's what I'm seeing, here's what I'm seeing, here's what I'm seeing, here's what I'm saying. What do you think? Like, you know, like this. And in the end, it just becomes about, like it's proselytizing at the end, like somebody just thinks that there's a thing they believe that is so important that it supersedes everything else. It needs to be spoken about all the time. And if you don't agree with them, somehow you're a monster. Yeah, and that's the thing with the Barbie doll. Like, it's like, look, it's not like, what's next? A crackhead Barbie? It's, I don't like the way the world's going. People are soft. Like, that's what they really mean. Like, just get a regular Barbie doll.
Marley 10:14
Somebody said it's this new generation. Everybody's got to be included. And I get that thought also, but it is a big deal when my one year old's at the park and a kid runs up to him, why has he got that on his leg? Why is he wearing that on his leg? And you're having to explain to a five year old that your kid has a disease that could kill him, yeah, and he has to wear this.
Scott Benner 10:35
I also, by the way, I mean, I could sit here and make the argument the other way, if you wanted me to, like, maybe there's something to their argument of, like, just a Barbie doll's a Barbie doll. It doesn't need to have other i I'm sure that if you want to go sit with a bunch of your friends at dinner or something and have a an academic conversation about whether or not Barbie should have an insulin pump or not, like, go ahead and do it. But that's not the same as just getting online and just attacking somebody for it. Or, like, yeah, exactly, like, it's just not the time and place. Yeah, it's weird. Like, you know, like you're grown and these are kids. That's what, in the end, that's what I end up thinking. Like, no matter what level of like, whatever you want to call it, I see I sit there, and I'm almost jealous. I'm like, how do they have the time for
Speaker 1 11:19
this? Yeah, exactly like you are grown. I would love to have the
Scott Benner 11:23
kind of free time that it must take for you to jump online to complain about my diabetes podcast that you don't have to listen
Marley 11:30
to. Instead, I'm trying to catch up on sleep, because I was up with my son with his low blood sugar
Scott Benner 11:35
all night. Yeah, like I, how about I got a job? Yeah, exactly. There are things in this life I detest. I have never spent a second making sure that the person knew about it. Like, you know, like, if I go to a movie and I don't like it, I we walk out in the lobby and I go, Yeah, I didn't love it. That movie sucked. Yeah, exactly, I don't then try to figure out how to contact Warner Brothers. Yeah, exactly, exactly that part. Like, I don't think I'm ever going to completely understand that part of it.
Marley 12:05
I think it just, it literally just shows that type one diabetes isn't is so unknown to basically all humans on Earth, unless you deal with it or have somebody that you're close with that deals with it.
Scott Benner 12:20
Yeah, yeah, no. I mean, usually you do have to be involved.
Marley 12:24
You have to, you have to be involved with type one somehow, because to grasp it completely, yeah, truly, you don't understand what goes into it until you see it
Scott Benner 12:33
firsthand. And Marley, and I'll tell you this too, and then you're still not going to grasp it completely, like, I have it from my perspective. I'm going to just tell you right now, like, I don't want to burst your bubble. Live with this. Yeah, I'm gonna, I don't want to burst your bubble. But my daughter just had type one since she was two, and in a few days, she's going to be 21 wow, she goes through more stuff than I'm ever going to understand, for sure. Yeah, and some of it I'm not even aware of, like, some of it I know about and can't contextualize, and some of it I'm never going to be aware of. And in fairness to everyone else out there who has a kid with type one diabetes, I've spent the last 11 years talking to people trying to figure out how they feel, so that hopefully I might understand how my daughter feels a little better. And guess what, it doesn't really help that much you can manage diabetes confidently with the powerfully simple Dexcom g7 dexcom.com/juicebox the Dexcom g7 is the CGM that my daughter is wearing. The g7 is a simple CGM system that delivers real time glucose numbers to your smartphone or smart watch. The g7 is made for all types of diabetes, type one and type two, but also people experiencing gestational diabetes. The Dexcom g7 can help you spend more time in range, which is proven to lower a 1c The more time you spend in range, the better and healthier you feel. And with the Dexcom clarity app, you can track your glucose trends, and the app will also provide you with a projected a 1c in as little as two weeks. If you're looking for clarity around your diabetes, you're looking for Dexcom, dexcom.com/juicebox when you use my link, you're supporting the podcast, dexcom.com/juicebox head over there. Now this episode is sponsored by tandem Diabetes Care, and today I'm going to tell you about tandems, newest pumping algorithm, the tandem mobi system with control iq plus technology features auto Bolus, which can cover missed meal boluses and help prevent hyperglycemia. It has a dedicated sleep activity setting and is controlled from your personal iPhone. Tandem will help you to check your benefits today through my link, tandem diabetes.com/juicebox, this is going to help you to get started with tandems, smallest pump yet that's powered by its best algorithm ever go. Control iq plus technology helps to keep blood sugars in range by predicting glucose levels 30 minutes ahead, and it adjusts insulin accordingly. You can wear the tandem mobi in a number of ways. Wear it on body with a patch like adhesive sleeve that is sold separately, clip it discreetly to your clothing or slip it into your pocket head. Now to my link, tandem diabetes.com/juicebox, to check out your benefits and get started today.
It's still her thing, very personally and even like, like, look, I don't think you're ticked. Like, I don't if somebody wants to make a Tiktok, I'm certainly not against that at all. But like, trust me, we could have a 15 minute conversation where I could tell you five things that would make you shut it off right now, you'd be like, Oh, I didn't realize how that could go. Doesn't mean it's gonna go that way. And it's, it's for you to figure out, and it's for him to figure out. And it's the same way with the podcast. Like, I'm sure I said something last year I wouldn't say this year. Yeah, exactly. You're always learning, yeah, I'm sure I said something 10 years ago that if I listened to it now, I'd be like, Oh my God. Like, that was ridiculous. I'm sure I said something three weeks ago that I'll wish I didn't have said but, but that's not how we figure things out like, like you being willing to like, point that camera at something, or me being willing to like, open up this microphone, not plan ahead, say whatever comes into my mind, knowing I might be right. I might be wrong. I might be like, my tone my I may be tone deaf on something like, all the possibilities, but like you can't look at it in the moment, like, you don't judge that five seconds, or this day, you have to step back when it's over and say, like, this was a journey that this guy, Scott, went on making a podcast. And is it a net positive? It is then great. Like, that's it. Was everything right? No, was everything perfect. No, do 20, 3040, people a day send notes that say, my life's better today than it was before I found the podcast. Yes, yeah, time for us, if I have to say something and be wrong, or Thumper through something trying to figure something out, or misspeak, or whatever the hell happened, I don't know what happens. Like, you know, like you're just talking like and in the end, it's getting people to a better place and in mass. And so I say, good for you, and you're, I guarantee you're doing the same thing.
Marley 17:29
Yeah. I mean, I feel like we get comments daily, if not that, say, like, my daughter just got diagnosed. Like, give me tips. What works for you? What over patches do you like to wear? Like, what kind of food do you like to give him? And you know, if I can help him any bit, I do not know everything. I do not know a lot. I feel like, but I'll help them, or lead them into that, diapers and diabetes Facebook group and heartbeat.
Scott Benner 17:54
Yeah, no, it's a wonderful thing. Like, you have to look back before the internet and say, all those people who had diabetes had all these same thoughts, and it began and ended with them, and unless they were lucky enough to meet a great doctor who oftentimes has to have type one if you're going to get the kind of down deep that you need, yeah, or they were maybe lucky enough to go to diabetes camp and have a good experience, because, by the way, I can point you to 10 episodes of people who went to Diabetes camp had a bad experience, so, like, everything had to go really super right for them just to meet another person or 10 more people that have type one diabetes, to not feel quite so alone. Yeah, and you're telling me now that they can pick up their phone and no matter how their brain takes something in, like, whether it's an hour long conversation between you and I, or it's a 22nd long video that somebody puts up on Tiktok like there's something out there for you to help you feel better about this and give you some information or even a direction to look into, right? There's you can't tell me that's a bad thing.
Marley 18:53
I think that's how Tiktok has saved me, because I don't know anybody that deals with being a mom of a type one diabetic toddler like no one in remotely close to me that I've ever seen this happen to so when I got on social media and I met these moms that have dealt with their child like I have a friend, her son's name is Miles, and she posts his life. And they have a diabetic alert dog. He got diagnosed at 10 months old, and anytime I need a question answered, she is there to help me. And he's now five years old, and she's dealt with it for this long now, and it just helps you feel seen, and helps you learn things from parents that have dealt with this that doctors and diabetic educators just don't understand.
Scott Benner 19:38
Yeah, there's a lot of good that's going to come out of it. And, you know, like, I said, like, even if you said something that was completely batch crazy. Like, people are smart enough to go, well, I'll ignore that part. The world's become like, a place where information is available and it's available the way you the way your brain works, even, which is even better. Like, sometimes people say to me, like, Hey, listen, I'd like. Have to listen, but I don't, I'm not good with audio, yeah? And I'll say, Well, we, you know, we have transcripts, if you think that would help. And a lot of, like, way more people, Marley, like, when Listen, when somebody told me, I need a transcript from the podcast. I was like, read it, yeah? I was like, What the hell? Like, you know, because that's not a way I would want to do it, yeah, but I heard them, and I was like, Here you go. Like, here's what I can offer you. They're AI generated transcripts. They're not perfect, but they're way better than nothing, and a lot of people read the podcast. So like, I'll tell you something that even I learned this week. I have about think I have 11 group experts who are just people in the Facebook group who help, you know, people answer questions. They'll say, like, Hey, here's an episode you might want to try, or here's a link that might help you, like, you know, trying to help people with with their questions. And this one person who is dear to me told me the other day, I don't listen to the podcast, and I'm like, what? I said, No. And she goes, No, I read it. And I was like, what? Like, I've known you for years, like, you don't listen to podcasts. She says, I don't think I've heard three episodes of it. That's so funny. Yeah? And to me, like, that's a thing that I would have never met things differently, yeah, yeah. So it's awesome. Like, and by the way, I'm not good at short form content. The way I do it. This is how I do it. Yeah, I can make a Tiktok. Nobody's gonna care about it.
Marley 21:26
I'm sure they would, honestly, because you have some stands I have,
Scott Benner 21:30
well, yeah, but I'm, I don't think I'm good at it. Is what I'm saying. Yeah, I know what you mean. Like, even if you listen to me talk about anything, like even Barbie I mean, let's be fair. I need 300 words to say what I'm gonna
Marley 21:41
say? Yeah, I feel you. I feel you totally, like, a little bit more time.
Scott Benner 21:44
Yeah, people are not, like, up for that on that platform? No, they want it quick and fast. No kidding, right? And even on YouTube, like, I don't want to, like, I mean, you should see me right now. I'm sitting here sideways. My foot's on my desk. This would not be interesting for you to watch, like, while we were talking, right? I'm good at, I'm good at the audio thing. I don't know. I just, I think there's so many different ways to reach people, and I'm grateful for anybody who's out there trying to do it. Now, for some people, it ends up becoming like a business, I know for me, like I have ads on my podcast. Like, it's certainly a thing that I do every day and spend, I mean, the better part of 1516, hours a day on sometimes, I'm wondering about you if, and you don't have to tell me, but I'm interested. Like, I think everybody thinks on Tiktok that you're all getting rich. But like, can you explain to people getting rich? Can you explain to people how it works? Because I actually think I know the truth, but I'd love it if you told somebody
Marley 22:36
so on Tiktok, I think you have to have 10,000 followers to get in the Creator rewards program, but you only get paid off new views, okay? And your videos have to be over a certain amount of time, okay, so if
Scott Benner 22:51
you somehow got to like, 3 million of your 4 million,
Marley 22:55
those viral, like those videos that go viral, yeah, you might see a few $100 you don't get, right? So you're not getting paid 1000. Like, it's just not, like, not what people think. No, yeah, and I'm not posting him to do that. Like, no, no, I don't money that we've made off tick tock. We're actually taking a huge family vacation next year for Bain. Like, we're doing this stuff for Bain. Oh, that's nice. So you're telling me that money back for Bain, yeah?
Scott Benner 23:22
So you're telling me that the money you've made from Tiktok is going to take your family on a nice vacation, yeah,
Marley 23:27
we're going on, like, this really nice vacation, a once in a lifetime opportunity for him, and it's something that he'll cherish and remember. I mean, he might not remember it because he's not even too but I'll remember it, and he'll have pictures and, you know, it's just that type of money's for him. If he gets brand deals, it's for him,
Scott Benner 23:44
right? And does that happen? Do people reach out and want to, like, do like a brand deal with you?
Marley 23:49
Yeah, he's an ambassador for a lots of different companies. Like, I don't know if you want me to say I'm on here. Honestly, he's an ambassador for, like, Spy belt. He does like some bars that, like, Wait, he loves Dino bars. He loves that zip bars. Like, they'll send him, they'll send him little snacks and spoil him. But no, we're not, like, rolling like, I still work. Yeah, no, I have a job.
Scott Benner 24:15
Yeah. I just think that people think that you're just like, oh my
Marley 24:18
god, Beatties is expensive. Like, you got to have jobs,
Scott Benner 24:22
and even if a company were to come along and offer you something for a video, like, I don't want an actual number, but we're talking about a few $100 like, right? Like, it's not going to be crazy, right, right? It's they're not. Like, hello, here is a pile of money. Here's $100,000
Marley 24:39
scam your your followers and tell them that this is awesome, like, and I'm not that type of person
Scott Benner 24:44
anyway. Yeah, no, it doesn't work that way. Is what?
Marley 24:47
Unless I love something, and that's something we use every day. No, like, I'm not gonna post that
Scott Benner 24:54
I even like one time some I said to somebody that I worked with, I was like, What are you paying those Tiktok. Years, and when they told me, I was like, Oh, I'm like, oh, okay, never mind. Yeah, I didn't understand exactly what was happening there either. I thought, like, bigger ideas and not the case.
Marley 25:09
So my goal for Bain is not necessarily to be Tiktok famous, or whatever you want to call it. It's more like, I just want, like, How People magazine put us in their magazine, and they put out an article about us, like, I just want people to realize that this is something that can happen to your toddler, and this is how we have dealt with it as a family, and this is how my son has dealt with it up until this point. And this is how, yeah, you know, my view of it is.
Scott Benner 25:37
It's exactly why I started that blog. I was like, I wonder if I could just raise more awareness around
Marley 25:41
this. Yeah, it has nothing to do with money. They could take the money away and I still would post tomorrow.
Scott Benner 25:46
Like, I have to tell you that this morning, I got a text and someone said, Could you do a one hour zoom at a diabetes camp? Like, could you zoom in for an hour and talk to people? And I always said, I said, Absolutely. I said, yes right away. Then it turns out the date overlapped with something else that I'm doing, albeit touched by type one that exact same day. And I said, Oh, I'm so sorry. I'm speaking that day already. I'm like, I don't see how I could carve out an hour from that day to do this, but I actually sat and thought about it. I thought like in the middle of one of the most busy days of my life, could I find an hour and do another thing for somebody? And I couldn't. So I said, is there another date I could do it? Yeah. She said, Well, maybe you could do it the next day. And then I thought, like, maybe I could jump on a plane and fly to that thing that night and then be there the next day for it. And by the way, that would have killed me. I'm old sleep, and I'm trying to think about how I could do it. And I could do it? And I said, Well, I could definitely zoom in the next day. And then she's like, well, we have another one in a few months. And I said, I'll definitely do that one for you. Doesn't interrupt anything. She goes, That's awesome. Thank you. Then she said, how much will we have to pay you? And I was like, for what? And she goes, like, well, is there's a speaking fee. And I was like, I mean, like, you just want me to jump on a zoom for an hour? And she goes, yeah. I'm like, I mean, I'm an adult, like, I'd just be happy to do that for you. Yeah? And it was like, really? I was like, don't get me wrong. I said, if you want to, like, dump a pile of money on me, I'll be happy to take it. I'm like, I'm not gonna tell you, No, yeah, but I'm not gonna shake $400 out of here for this. That's ridiculous. I was like, just tell me when it is and I'll make time. And I'll do it. I don't think people would think that, you know,
Marley 27:23
they wouldn't think that they wouldn't, especially the type of people that don't have your best interests or don't believe in you as a person, or what you're doing, that's the first thing, like, you're using your child's disability for money. No, I'm not, like, I never did this for money.
Scott Benner 27:39
I can't imagine that anybody could start this and think that they were going to like that. It was going to
Marley 27:44
work out again, rich off diabetes, because it ain't me. It's like Eli Lilly, you know what I mean?
Scott Benner 27:49
Well, listen, I also, I don't, I'm not crying poor. Like, I have a pretty big podcast, and I have a lot of sponsors, and I do make a living from it. Like, there's no doubt about that. Yeah, there'd be an argument to be made that if I, you know, assigned a reasonable dollar value to all the people that have been helped by it, that I'm probably not making very much as much as you should. Yeah, exactly. I don't assign a value to it. It is what it is. And by the way, it's not going to last forever, and
Marley 28:15
it's your it's a greater purpose, like, that's your testimony. That's how you're helping people.
Scott Benner 28:19
The word legacy has been used to me a couple of times in the last couple of weeks. I never really never really thought about that way, but I feel like, for sure, you have a legacy. Feel good about that. You know, also, it's social media, it's gonna just stop one day. Like, it's not a job that, like, I make a nice living, right? Like it's it's comfortable for me, and it's a thing. By comfortable, I mean, it's an amount of money that pays my bills, that allows me to save a little bit that, like, you know, makes me feel like that my time is being compensated in a way that I'm comfortable with. Like, I could go get a job and make more money, yeah, for sure, I kind of feel the same way, right, so, but I'm doing this, like this, but also, like, try to be like, a little like, understanding this could just stop, yeah? Like, what am I gonna do? You know what I mean, what am I gonna send out a resume that says, hey, I made a really popular podcast. Yeah, people are gonna go, we don't care about that. Yeah? Like, I need somebody that knows how to build this wall or knock this thing over do this thing. Like, I can't just go get another job, and, by the way, just starting another podcast that's over too. Like, even that was, like, it's a moment in time. Like, right now, you don't start a new podcast and get to where I am unless you're, like, famous already, like, yeah, like, you've built this from the ground up, and I happen to have been in a window when that was possible. Yeah, that possibility doesn't, I don't want to break people's hearts, but that possibility doesn't exist. Possibility doesn't
Marley 29:43
exist anymore. Yeah, it's hard even I feel like, not that we're tick tock famous or, you know, we're not like the OGS, but there I'll see new kids popping up on tick tock. I feel like, every day, I'm like, I don't know if they're just doing this, you know, to spread awareness or. They doing it because they see other kids on here, I don't know, like, I feel like every day there's new ones. And I'm always commenting like, Hey, welcome to Tiktok. I'm glad you're
Scott Benner 30:08
here. Yeah, now you got to just invite everybody in. And it shakes out in the end, like, there are some people who are just think there's money there, like they see, yeah,
Marley 30:16
that's the kind of thing I'm trying I'm trying to figure out not that I even care. I'm like, are you doing this because you think your child will bring in money? Because I promise you, like, I'm not rolling $10,000 a month. Like, it's just not like that.
Scott Benner 30:27
I mean, if you want a couple of free bars, remember, listen, I want to be fair. Let me be honest. Here I am looking at an absolutely free freaks of nature stick for my face, sunscreen. I got it absolutely free. AG, one sent it to me. There's almost an ounce of it in here, and I did not have to pay for it. There you go. I I'm rolling. Oh, and you know what? Hold on a second. I do think I have here. I'll open this right now. I've had this for two weeks. I haven't opened it. Omnipod sent me this. Let me see what's in here. I'm seriously opening
it right now. It is. I have five copies of the DIA Sonic, sound of strength, Marvel, comic book from Omnipod. They doing like a collab with Marvel. They did, yeah, all right, I'll give these away. You know, I was gonna sell them and buy a house, but I'll give them away. I'll give them away instead. Also, running your own business is not a lot of fun.
Marley 31:28
So I feel like that's that's more of a perk on being social media than not. Like companies like to, like, send you little thing stuff, yeah. Like, they'll send Bane like, cookies or like, I don't know clothes like they I love to dress him. It's probably not. I live in Mississippi. I don't know if you can hear my
Scott Benner 31:48
accent, but you're a delightful Marley. It's the only thing I hear. But go ahead, we put
Marley 31:53
smart like, not all parents, but I dress Bane like, in smocked outfits and cute, very expensive outfits. Like, that's just what we do in the south. And all these cute boutiques are like, I'll send Bane some clothes. I'm like, Yeah, send them some clothes. I don't want to pay $50 an outfit. Like, send it. I'd be happy to take that from you. Yeah? Like, I'll post that on tick tock. I don't care.
Scott Benner 32:16
I was at friends for life last week. I got a tandem t shirt, a Dexcom t shirt. I took one of those Lenny the lions from the Medtronic table. That was, by the way, they're kind of awesome. I think I took a teddy bear from Abbott.
Marley 32:30
You got to get everything, yeah? I also
Scott Benner 32:33
gave away two Apple Watches while I was there. So I think I'm in the net.
Marley 32:36
I'll try to go next year. Oh, it was really great.
Scott Benner 32:39
It was my first time, it was really awesome. Yeah, so, but yeah. I mean, look again, I'm not I have no trouble saying, like, there's ads on this episode I got paid for Yeah. Like, yeah, exactly. But hopefully you got something out of it that makes it feel like you know
Marley 32:56
for sure. And I'm telling you, like, whenever bang got diagnosed, anytime you ask a question, like, how am I going to do this? Or, I think the first thing I said on diabetes and diabetes was like, I still breastfeed my child. He just got diagnosed with diabetes. How do I do this? Like, the doctors don't know how I'm supposed to dose for this. What am I supposed to do? And everybody on that group was telling me what to do, and then they'd be like, you need to buy a sugar pixel. You need a you need to join the Juicebox podcast. You need to listen to these episodes. Like people like you are the go to I feel like, for most people like you need to, you need to listen to this. You need to get in this pot, this group.
Scott Benner 33:35
Yeah, I'm glad to know that. So, you know, I'll finish with this. I think this was interesting. You mentioned earlier, there was like, something on you guys in People Magazine, and people posted it inside the Facebook group. And I was like, Oh, that's awesome. And then you, you answered, and I was like, Oh, my God that ladies in here. Like, that's how it makes me feel, ladies, yeah, I'm like, oh look, because I don't know who you are. Like, you just you're somebody's mom at that point. Like, I'm not sure. And then people are like, actually, there's like, a fake Facebook group for her. So this so people started reporting you as, like, not being you. This hilarious. Oh my gosh, that I just sent you a note. I just sent you a note, right? I was like, Are
Marley 34:11
you did you're like, is this real? Yeah, I think you said, Is this real? Please don't
Scott Benner 34:15
mess with me. I don't have time. Like, are you the real person? So
Marley 34:18
whenever before Tiktok, went to that fake band thing in January or whatever, like it was gonna get banned and didn't or whatever. That's when people on Tiktok started transitioning to like Instagram, I feel like so I made an Instagram for Bain. I never used it, and it never got banned or whatever. So we just kept on posting on Tiktok, and then one day on Facebook. I was on my personal Facebook that I've literally had since elementary school. Video came up of me and vain, and it was like a video of our tiktoks with the caption, and the user was like, Marley Brandon or something, and I'm like, I didn't make a Facebook. I don't think like, Did I make a Facebook when I made Instagram? Did it like make a Facebook? Book. So I go look the page has like 30,000 followers, millions of views, and has basically all our videos from the past three months on there with all millions of views. Yeah, and it's not you, so they're rolling in the money, I'm sure, from Facebook views, honestly. So I reported it, yeah? So I report it for copyright, because, sure, apparently it's very hard to get in touch with Facebook, because I could not get in touch with anybody from Facebook, yeah, but I found out from Reddit how to like, basically get them for copyright, and had to support all this stuff with, like my Tiktok page or videos or whatever. And it finally got taken down. And then that's when I just made a Facebook for us, and I just pay for the blue check mark, because if you pay for the blue check mark, they'll take down anybody that's like frauding you or like scamming
Scott Benner 35:53
your name. Oh no kidding. I didn't realize that. So it's worth the $15 I pay so little attention to
Marley 36:01
all this stuff that was my real Facebook, like my facebook I've had since elementary in your group, and I joined your group, like, probably the week he got diagnosed. I'm not really active, like commenting, but I do read every single day, like, different things that pop on my Facebook, and somebody posted that article, and I was like, hey, that's me, and
Scott Benner 36:23
basal, that's so cool. No, I and I was happy that it was actually you. And then this is how this got set up. So anyway, I think it's great anybody who's willing to, you know, share how they feel or what they're experiencing. I think it just helps people immensely. You do have to have a thick skin, so I hope you're okay. I noticed this morning, because I get an email when, like, new stuff pops up for the podcast, and I clicked on the latest one. It's like, the Juicebox podcast is a fantastic resource for anyone living with type one diet. And it goes on, it's very lovely, right? And then I look at the next one, and the next one's like, I've seen several people in online groups recommend this podcast, and I've tried to listen a few times and I didn't get any useful information. The problem is, Oh, good. This person's listened at least three times, so they know it's too long. There's too many episodes, and frankly, the host seems to talk about himself a lot, and, God, annoying. I don't have time to sift through all that casual chatter to find the useful information. Now there's a person who they don't realize the bigger picture, which, by the way, it's cool if you don't like me, or if you think I'm annoying, or whatever, I would assume not everybody likes it. Yeah, like everybody likes everybody, or that everybody's everybody's cup of tea. But what that person didn't realize was is that the the information that they're being told about is, like the Pro Tip series, or the bold beginning series, or, like those series of you know stuff. We just put out a bunch of mental health stuff, again, with Erica and like that kind of stuff. Like, that's what people are talking about. But why does it still exist so somebody can click on it? Because I also make a podcast like, where you and I are talking like this, like this, yeah, these conversations beyond offering people who wanted community, which is obviously not what this person was looking for, and they were very brave not to use their real name in the review, but that's not what this person was looking for, but it was there. They just didn't figure it out that it was there, or look in like it has a lot of episodes. That's how it stays popular. Because it's popular is why people have the time to build out a 25 episode series for the Pro Tip series, or like like or how I'm able to put the time into making sure that like Erica can come on and talk about a bunch of different mental health issues and stuff like that or that. We you know how we can spend months culling together people's thoughts on what do I wish my doctor would have told me when I was diagnosed that we can put the Grand Round series, it has to be a viable thing so that it supports the effort that needs to go in to get the information that this person obviously wanted but couldn't find. And what they're mad at isn't me. They don't realize what they're mad at is the way podcast apps are set up. Like, yeah, I can't put it all together. Also, if they would have hung out a little longer, they would have realized that I just started a second podcast where only the series are going to run in order. Oh, that's awesome, yeah. And two weeks later, this person would have heard an ad for that and then known where to go to find it, yeah.
Marley 39:20
But instead they had to come to Facebook.
Scott Benner 39:23
Try to imagine that you've tried like people say, Hey, this is a nice podcast. Like, you see all these people saying something nice about it, and then it's not your experience in a brief section of time. And your first thought isn't, like, I wonder what I'm missing that all these other people are seeing. The first thought is, oh, well, this podcast sucks. And I'm like, okay, like, I don't know how people's minds work that way. Like, if somebody tells me over and over again, like, something's really valuable to them, and I go, look at and I go, it's not valuable to me. I don't think, Oh, the thing's not valuable. I think I don't intersect well with it, yeah.
Marley 39:59
Or, like. Maybe that episode wasn't for me. Maybe I should go to a different series.
Scott Benner 40:03
Maybe I just hit the wrong thing. There's like, yeah, I find that super interesting.
Marley 40:08
Like, if I went in to your podcast and looked up Omnipod stuff that doesn't pertain to us in our life, like, No, I'm not gonna take anything from that, yeah. Also, I'm not gonna come to Facebook and complain about that episode.
Scott Benner 40:21
I mean, that's what we talked about earlier, yeah, that's just, like, the I now have time to go complain about it. Like, just, it's not for you. Like, just go ahead. That's okay, yeah, it's awesome. Like, just don't like it and move on. Yep. I love that TV show. What's it called the bear? I sometimes I tell people, and they go, I don't like that at all. And I go, okay, yeah, it's awesome. You go watch what you like. I just thought that was funny because it literally, like, I opened up my email here as we were getting ready to get done, and you just see, like, these just lovely, like, lovely things. And then the next one's just like, this sucks. I'm like, okay,
Marley 40:58
like, I promise you it, there's more people that love it than hate it.
Scott Benner 41:02
Also, it's cool, if you think it sucks, and if you do, then it sucks. Like, that's fine. Like, I still don't
Marley 41:08
know, it's not a big deal. Yeah, the world still keeps rolling.
Scott Benner 41:11
Yeah. Anyway, it's very cool. I'm glad you did this. I lose you a ton of success with everything you're doing, and with Bane obviously, it's going to be a long, ever changing process raising a kid with type one, there's going to be things that come up that you never expected. My best advice to you would be to try to stay flexible and do your best to try to see Bain's side of it while you're going because there's a balance. I've been thinking a lot about this lately. There's a balance between healthy and harmonious. It's not always easy to make those decisions. So yeah, for sure, and they appreciate you for having me. Yeah, no, it was really lovely. I love that you said. I don't know if you I'm sorry
Marley 41:51
for my soup, sorry for my dog, what you're sorry for? What my super country accent? I'm sure I probably sound like a hick, but I promise you, I'm not.
Scott Benner 41:59
No, not at all. It's, it was, it's, it's delightful. I thought it was lovely. I was gonna say to you, I appreciate you saying. I don't know if you can hear my accent. That was maybe the funniest
Marley 42:08
thing. You don't realize how contour you sound until you hear yourself. You're like, oh my goodness, I sound like
Scott Benner 42:15
that. I don't know how northeast I sound until somebody points. You just
Marley 42:19
sound like a very like well spoken American, do I
Scott Benner 42:23
really, that's crazy? Yeah, to me, you do well you are country. Then if you think I'm well spoken, but I'm country, I know I am. There's nothing wrong with that. Qualms with where you live, it would be the humidity, not your accent.
Marley 42:35
Yeah, the humidity is horror. Like, I don't know what I'm gonna do with this heat and bane's blood
Scott Benner 42:40
sugars, they've been horrible. Yeah, no, I couldn't live like that. The humidity right now is 80% Oh, no, no, no, no. I would, I would, I would miss 87 degrees outside. I would have a podcast where I just complained about the humidity.
Marley 42:53
So it's horrible. And Bane went from like a normal blood sugar to 40 double arrows down.
Scott Benner 43:01
Wow, wow. Yeah. Because what happens? It gets real hot and then overheat. Yeah, just people.
Marley 43:06
People online keep telling me, when they go outside in the heat, they go up, but he tanks.
Scott Benner 43:11
It's funny how, it's funny how, like, you make me think about, some people say that about a shower, like, I get in the shower and my blood sugar goes right up. And then other people say, I get in the shower, my blood sugar tanks.
Marley 43:23
Yeah, you just never, I guess it just depends on the person. But he always tanks,
Scott Benner 43:27
yeah. You know, you could break down every little bit of this and have like, long conversations about it. Like, I've heard people say, get, you know, you heat up and like, you're, I don't even I'm, this is not gonna be technical, but like, you know, your vessels kind of, like, expand, and then maybe that helps, like, move the
Marley 43:42
insulin more. I've heard that too, like, it makes your insulin hit harder or something.
Scott Benner 43:47
I've also heard people say, like, I just get in the shower and I relax. My my anxiety goes away, my stress goes away, and I think that I have a bunch of insulin that's like fighting with the anxiety, it goes away. I've heard people say, I get in the shower and my body heats up and my blood sugar goes up. It goes down. Like, who the I mean, you know, good luck. It ain't easy.
Marley 44:03
That's part of like, What sense does diabetes ever makes? It doesn't make any sense ever.
Scott Benner 44:09
No, no kidding. Okay, all right. Well, Marley, this was awesome. I appreciate you doing this. Thank you for taking the time of people want to check you out on Tiktok. It's m, A R, L, E, E, B, R, a n, d o, n, that right, yep, yep, okay, hold on one second for me, please. Okay.
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#1656 Bolus 4 - Little Bites
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or wherever they get audio.
Jenny and Scott talk about bolusing for Little Bites chocolate chip muffins.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends and welcome back to another episode of The Juicebox podcast.
In every episode of Bolus for Jenny Smith and I are going to take a few minutes to talk through how to Bolus for a single item of food. Jenny and I are going to follow a little bit of a roadmap called meal bolt. Measure the meal, evaluate yourself, add the base units, layer a correction. Build the Bolus shape, offset the timing. Look at the CGM. Tweak for next time. Having said that these episodes are going to be very conversational and not incredibly technical. We want you to hear how we think about it, but we also would like you to know that this is kind of the pathway we're considering while we're talking about it. So while you might not hear us say every letter of meal bolt in every episode, we will be thinking about it while we're talking. If you want to learn more. Go to Juicebox podcast.com. Forward, slash, meal, dash, bolt. But for now, we'll find out how to Bolus for today's subject,
nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan. Jenny, we are going to jump into our Bolus for today. Yay, with one that I will admit got me when Arden was first diagnosed, and is a food that I no longer will let my children eat. But, and I think it's diabetes that showed me that this is not a thing we should be eating. Do you know a little something called little bites, chocolate chip muffins?
Jennifer Smith, CDE 1:47
I do. Are they? They're not a Little Debbie product? Are they
Scott Benner 1:50
made by a company called entamins? Oh, and
Jennifer Smith, CDE 1:52
Tim, oh, I Well, I know entamins Definitely. They're the, they're the package thing that looks like, even after the apocalypse, they probably wouldn't be moldy in the box at the grocery store,
Scott Benner 2:02
right? There's something to it, because a pouch of little bites chocolate chip muffins, which I think, I mean, if I'm going off of how they got used in my house, it's, you know, from mornings when you got up late and the kids would grab them and go to the bus with them, or something like that, right? Okay? And to say that the muffins are maybe, I don't know, like maybe an inch and three quarters across and maybe that high. They're not big. Sure you ran, I think you get five, usually in a bag, but once in a while you only get four. You get six. It's a crazy day. You've gotten super lucky, and there's six in there. But let's just go with the five. I'm looking at the label right here. So at calories, 190 calories for the pouch, okay, nine total grams of fat, not so bad. There's a lot of cholesterol in them. That's interesting. 20 milligrams of cholesterol, 150 milligrams of sodium. Total sugars, 17, added sugar, 17 total carbohydrates, 27
Jennifer Smith, CDE 3:03
and what? What's half of 27 it's half of 27 it's,
Scott Benner 3:09
let's see 10, like 13 and a half, or something like that.
Jennifer Smith, CDE 3:13
Do you know why I'm asking this? I have no idea. I'm asking it because 17 grams of total sugar means that more than 50% of these muffins
Scott Benner 3:23
is sugar. Oh, yeah. I don't know what a muffin is, but it's not it's not that,
Speaker 1 3:27
like these are Sugar Bombs in a
Scott Benner 3:31
package. I want to point out that if this Smart Label website that I'm on is correct, that these are manufactured by bimbo bakeries for intimacy. If that's correct, are they trolling us? Is that what's happening exactly? Yeah. So if I, if I switch over to the ingredients label, the first thing on the ingredients label is, in fact, sugar, then it is white flour. So those are your tops, sugar and white flour. Anyway, let's go to our our steps. Is there any protein? Yes, like a gram, I think it's two protein, two, two grams of protein, no vitamin D. There is some added calcium, iron and potassium. Okay, fortified isn't my new favorite word is, we're doing this. It's been fortified,
Jennifer Smith, CDE 4:23
fortified and enriched. Yes, they're both right.
Scott Benner 4:27
It makes it sound like they've lined a bunch of army people around our castle to fortify it. We're going to be safe because we fortified your mother for you. Don't you worry. Everything's going to be fine. Now here's the real interesting thing about little bites muffins, from my perspective and from the perspective of everybody who wrote in about little bites muffins I have, I didn't realize they were such a thing. They are so high on my list, and my list is set up by how many people brought them up. So wow, yes, they are only below here. This will give you some context. They are only below pancakes. Pop Tarts, French toast, Costco muffins, cinnamon rolls from Cinnabon. Oh, I haven't had a Cinnabon in a long time. Toaster, strudel oatmeal cereal. That's the only thing that's above it on the list, so, but here, somebody actually sent in a little vignette about them, and I'm gonna read it, please. She eats them almost every morning. We're MDI. We Pre-Bolus 45 minutes. If we give her a half a unit more, she crashes hard. We've played around with the Pre-Bolus too. And no matter what, she goes to 230 and comes back down. Then this person came back, commented again, 25 weeks later, because I've been pulling this information together for like, a year. Okay? So I know people are like, Oh, I didn't realize he was actually planning any of this out. So 25 weeks later, she came back and said, We figured them out. We pair it with a protein, like an egg or a breakfast meat. We Pre-Bolus 30 minutes. She eats the protein completely first, then the muffins. We also do four to six ounces of water during the Pre-Bolus to get her hydrated. She still goes to 160 or 170 but comes right back down. She used to sort of 250 or even 300 every single time we ate these muffins. And this person's like, Hey, we got this down now. And I really and thanks to the podcast. And actually they thank Omnipod five, and they're all happy. But that's a win. A win is, you know, yeah, yeah, it absolutely is. But at the same time, I mean, I'm in my mind, Jenny's going don't eat those muffins. I think that's the answer to this question. But, like, I know we don't have them in front of us, and we don't have a breakdown, but there's something about this specific food item, right? That just, it's like rocket fuel. I mean, a 45 minute pre bouls And she was still going
Jennifer Smith, CDE 6:46
to and again, kudos to this person, this family, honestly, for sticking with it and saying, Hey, I'm going to figure it out. I know there are a lot of there are a lot of kids who have choice kind of issues, sensory types of issues, that it is what it is, and you have to do the best that you honestly can. And while the parents were probably thinking, we could just change this, maybe it wasn't that easy. And despite it not being food that technically is providing quality nutrition, they have figured it out, utilizing all of the strategies that they have learned, which is 100% a win for them, they are now getting glucose levels that are much, much improved, right shorter. They're also not over bolusing to achieve the results, and probably along the lines of the A ID system, Omnipod, five. It sounds like they're using right? They've figured out by doing a lot of experimentation, how much do we have to give? What do we have to add to the picture? The proteins and the fats are huge, especially along the lines of starting with them first, so that it creates almost a slower digestion to get going, especially first thing in the morning, their body's breaking that down before you put in the sugar, which is what these are, right? I mean, you read the ingredients, you can't lie about it. They're more than 50% sugar by kind of carbohydrate count, but they've navigated smoothing that and again, on the back end, with the help of the A ID and their bolusing strategy and the way that they're putting their nutrients in, they figured it out.
Scott Benner 8:29
Yeah, no, I think it's awesome that they said to themselves, there are settings here and timing that will do will handle this. Yes, and they did it, which is awesome. So like, let's another thing to add to this, but let's go back here to our to our checklist, measure the meal we did that, evaluate yourself. You know, it's, she actually said it's the morning like, not as hydrated. She put some more water in. Yeah. You know, gonna come out and see, you know, is our blood sugar? 150 is it? 180 is it 70? You know, right? Keep that in the in the idea, when you're making your Bolus, calculate your food with this one here, using our one to 10, you know, example number that we're going to use every time in one of these episodes, just looking at like 2.7 units, right? You know, as
Jennifer Smith, CDE 9:13
long as your blood sugar is at Target or in that target, then there's no correction.
Scott Benner 9:17
And if not, we'll make a correction to that if there's more less needed. Now this is one of those where you're like, Well, how do I build the Bolus out? Is it? Is it extended? Like it's tough one because it hits so hard. I mean, obviously, look at the crazy Pre-Bolus. She needed just to sort of stay ahead of it. But if she were to make the Pre-Bolus that long and give a little too much insulin, there was a crash. So she gets that all figured out. It's a tough one for me. Like, I know it's a, it's a sugar spike, I wouldn't feel super comfortable layering, like extra basal or extended boluses over a sugar spike, because it's gonna, it's gonna crash the other way, right? And then, you know, take a look at your CGM an hour later, and, you know, make adjustments if you need to. And then a. Right? The thing she did, which is awesome, which was tweak it for next time
Jennifer Smith, CDE 10:03
well, and something that goes along with building that Bolus, especially for breakfast or the very first meal of the day that you're eating, this can definitely still be the case, even on an A ID system like Omnipod five, that you don't have control of your basal anyway. So it's not like they could really shift that, because it's right, it's an adapted give. But if they've had any mornings that this child has slept in or maybe didn't want breakfast, they probably had a good idea that without this meal, everything looked hunky dory, right? Everything was smooth in Target stable, there were no issues. So they knew that the Bolus and how they were adjusting for the components of the meal eventually, that was going to be what created the win.
Scott Benner 10:52
Let me ask you a question, because when this happened to me all those years ago, what I did was I started making chocolate chip muffins from scratch, and I just used, I didn't do something super healthy. I went to actually remembered what it was, and brought it up while we were talking King Arthur baking.com. So King Arthur makes flour, a lot of different flour, and they have some recipes on their site. So I found this, like they call it a golden chocolate chip muffin recipe. Now I'm gonna, I have the nutrition from that here to show you that it's not like some like, you know, grand experiment in good health, right? You get 12 muffins out of a batch. Now, a muffin is 95 grams, and with the little bites, the pouch was 47 grams. So, you know, it's twice as big. You don't have to eat the whole thing. But keeping that in mind, but there are 50 carbs in a 95 gram muffin made from this, you know, King Arthur recipe that I found, 17 grams of fat, way more cholesterol, you know, more sodium, 50 carbs, right? But it's butter, sugar, baking powder, salt, flour, eggs, milk, chocolate chips. That was it, right? And it did not hit Arden nearly as hard. So then I'm sure not, yeah, yeah. But, like, let's give people some understanding why. So I just read you the the ingredients of the muffins I made. That was, that's what's in them. The ingredients on the little bites are sugar, bleached wheat flour, water, soybean oil, chocolate chips. And it's easy to say, oh, good chocolate chips. Chocolate chips are sugar, chocolate liqueur, dextrose, coconut butter, soy lecithin, lecithin, vanilla extract. Now there's also in that eggs modified corn starch, dextrose, whey, fructose, glycerin, leavening agent, which would you know, like baking soda or baking powder, like that, artificial flavors, mono and big lysir rides. Do you know that one digly, CDE, glycerides, salt, sodium, sterile, lactate, sterile like lactate, potassium sorbate, which is a preservative, sorbitin, mono sorbet and mono saturate. Xyna, thin gum, poly sorbate, 60 cellulos, gum, soy lecithin, lecithin, whey protein concentrate. So somewhere in those words, is the reason, right? And it's mostly sugar, right?
Jennifer Smith, CDE 13:27
That is the major hit. It's the reason that it required initially, at least a 45 minute without even really great results with that right?
Scott Benner 13:36
Why does that hit harder and is more difficult to control than the one I made that has more sugar in it.
Jennifer Smith, CDE 13:41
It's the simplicity of the ingredients. And the question too, is your flour? And I know the King Arthur Flour brand, they have quite a number of quality types of flowers, my expectation is that you weren't getting a bleached flour.
Scott Benner 13:59
Yes, yeah, no, yeah. And I do, and I do that on purpose too, actually, now that the prices are all crazy, it doesn't matter anymore, but I did, you did spend, I think, a couple dollars more for a five pound bag back then, right? Yes, that was me trying to say, well, like, if we're gonna do this, like, at least, let's use as pure ingredients as possible, correct? Anyway, absolutely. Okay, so there you go for all you little bites fans, of which, like I said, God bless you. They're super easy to buy. They're super easy to give to the kids in the morning. And you know what? It's funny on the label, I just want to say it says, made with real chocolate. There's no artificial colors in it. And this one's like, actually surprised me because of how hard they had no high fructose corn syrup. So what happened there? Yeah, well, they used sugar instead, there instead,
Jennifer Smith, CDE 14:50
which, you know, great again. But I think the biggest hitter that this family found was that, and it's much like the glucose goddess talks about. And I. Taught years before I even know who she was. Right? It's if you start a meal with some proteins, proteins and fats, you get a much slower glycemic hit from the carbs that you do eat. Now, the nature of the carbs makes a difference as well, which we've talked about. But if it's going to be a carbohydrate like this one in particular. Definitely help yourself by adding something in that's providing a stabilizing base.
Scott Benner 15:29
Awesome. Okay, I appreciate it. This is, I mean, this is going to be a good one. People love this, these chocolate chip mops. I also want to say I thought they were good too. That's all. Bye, you.
In each episode of The Bolus four series, Jenny Smith and I are going to pick one food and talk through the Bolus thing for that food, we hope you find it valuable. Generally speaking, we're going to follow a bit of a formula, the meal bolt formula, M, E, A, l, B, O, L, T. You can learn more about it at Juicebox podcast.com, forward slash, meal, dash, bolt. But here's what it is, step 1m. Measure the meal E, evaluate yourself. A, add the base units, l, layer a, correction B, build the Bolus shape, O, offset the timing. L, look at the CGM and T, tweak for next time. In a nutshell, we measure our meal, total carbohydrates, protein, fat, consider the glycemic index and the glycemic load, and then we evaluate yourself. What's your current blood sugar, how much insulin is on board, and what kind of activity are you going to be involved in or not involved in? You have any stress, hormones, illness, what's going on with you? Then a we add the base units your carbs divided by insulin to carb ratio, just a simple Bolus l layer of correction, right? Do you have to add or subtract insulin based on your current blood sugar? Build the Bolus shape? Are we going to give it all up front, 100% for a fast digesting meal, or is there going to be like a combo or a square wave Bolus? Does it have to be extended? I'll set the timing. This is about pre bolusing. Does it take a couple of minutes this meal, or maybe 20 minutes? Are we going to have to, again, consider combo square wave boluses and meals, figure out the timing of that meal, and then l look at the CGM an hour later, was there a fast spike three hours later, was there a delayed rise five hours later? Is there any lingering effect from fat and protein tweak for next time, tea, what did you eat? How much insulin and when? What did your blood sugar curve look like? What would you do next time? This is what we're going to talk about in every episode of Bolus for measure the meal, evaluate yourself, add the base units, layer a correction, build the Bolus shape, offset the timing, look at the CGM tweak for next time. But it's not going to be that confusing, and we're not going to ask you to remember all of that stuff, but that's the pathway that Jenny and I are going to use to speak about each Bolus. Hey, thanks for listening all the way to the end. I really appreciate your loyalty and listenership. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox podcast. The episode you just heard was professionally edited by wrong way recording, wrong way recording.com,
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#1655 Bain’s Mom Marlee (TikTok) - Part 1
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or wherever they get audio.
Crystal, 33, T1D since 12, recounts DKA, insulin restriction for weight, congenital health challenges, and her turnaround—prebolusing, diet tweaks, and pursuing an insulin pump—with community support and hope.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Here we are back together again, friends for another episode of The Juicebox podcast.
Marley 0:14
Hey, my name is Marley. I have a type one diabetic, one year old son named Bane, and you may have seen us on Tiktok or Instagram and now even Facebook, we just post our life as a family handling type one diabetes and our toddler son, and just go with the flow and do whatever.
Scott Benner 0:36
If your loved one is newly diagnosed with type one diabetes and you're seeking a clear, practical perspective, check out the bold beginning series on the Juicebox podcast. It's hosted by myself and Jenny Smith, an experienced diabetes educator with over 35 years of personal insight into type one. Our series cuts through the medical jargon and delivers straightforward answers to your most pressing questions. You'll gain insight from real patients and caregivers and find practical advice to help you confidently navigate life with type one you can start your journey informed and empowered with the Juicebox podcast, the bold beginning series, and all of the collections in the Juicebox podcast are available in your audio app and at Juicebox podcast.com in the menu, nothing you hear on The Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan. Summertime is right around the corner, and Omnipod five is the only tube free automated insulin delivery system in the United States, because it's tube free, it's also waterproof, and it goes wherever you go. Learn more at my link, omnipod.com/juicebox That's right. Omnipod is sponsoring this episode of the podcast, and at my link, you can get a free starter kit. Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox this episode of The Juicebox podcast is sponsored by us. Med, us. Med.com/juicebox, or call 888-721-1514, get your supplies the same way we do from us. Med, the show you're about to listen to is sponsored by the ever since 365 the ever since. 365 has exceptional accuracy over one year and is the most accurate CGM in the low range that you can get ever since cgm.com/juicebox
Marley 2:33
Hey, my name is Marley. I have a type one diabetic one year old son named Bane, and you may have seen us on Tiktok or Instagram and now even Facebook, but we just post our life as a family handling type one diabetes and our toddler son, and just go with the flow and do whatever. All right,
Scott Benner 2:57
let's talk about that. How old was Bane? Also with Bane. Like, is that a Batman reference?
Marley 3:03
Actually, not. My husband does love Batman, and he actually told me that was a character in Batman, like, probably three months after we decided we were going to name him that, and it's not spelled the same as Batman's. I don't believe gotcha, but it's just a name that I heard and I liked it, and I thought it would be a strong name because of our last name, and it's just, I don't know we love it,
Scott Benner 3:27
yeah? No, I do too. Actually, it's different. Yeah, it is. It's very cool. So Benner is your first
Marley 3:34
he is my first child, which is kind of traumatic that this happened as a first time mom. He was diagnosed at 12 months old. He had his first birthday, and then five days later, we were in DKA in the hospital to being told that he has diabetes, and it was a whole thing.
Scott Benner 3:51
Well, five days after his first birthday, yeah, it was horrible. I imagine my daughter was a week or two after her second birthday, and that was also crazy. So prior to that first birthday, did anything stick out to you as being sketchy, weird, anything medical,
Marley 4:08
really, no, like in hindsight, now that I know the symptoms and the characteristics of type one diabetes, yes, but at that point, no, he's always been a very healthy child. He never really got sick. He's only gotten sick twice in his life. He had an anaphylactic reaction to eggs when he was nine months, going on 10 months old. And then, other than that, no, we had never nothing stuck. Noticed anything now, what made us take him to the ER, he was started having, like that, lethargic, heavy breathing. Then he then it started the vomiting, and it just kind of really started to snowball within a few hours, and it got really bad. Where we were, my husband was like, we have to take him to the hospital. And we went, and I. Thinking they would tell us like he has the flu, or he has RSV, or, you know, normal things that normal babies have. He was in DKA though, yeah, he was in DKA and in a diabetic coma, and they were like, your son has type one diabetes. And you just never expect anybody to be told that, especially your infant son, and it was just, it hit home. It was horrible, like it truly was, No,
Scott Benner 5:25
it's not one of the things you plan for when you're thinking about having a family, that's for sure. No. So he had the Coos, small respirations. He was breathing really heavily. And then was that just for, like, the day, and then the vomiting, and then the hospital was, did it all come like in a very close time period?
Marley 5:43
It did like leading up, like I would say that week, three days before he got diagnosed. He was being grumpier than usual, kind of really tired. He always drank a lot. He was a big breast feeder. He was big on water. He always was drinking. He's been like that. Since he was a newborn, he was just one of those type of babies, and then he also was always peeing out of his diapers. And people just were like, That's what boys do. They just do that. So being a first time mom, you just don't think,
Scott Benner 6:16
tell me, Marley, how long was the peeing out of the diapers going on for?
Marley 6:20
Probably I would say at least a month or two.
Scott Benner 6:23
Okay, truly, I'm gonna guess that's your time frame of like on set to Yeah, to diabetes, truly,
Marley 6:29
now that I know things, now that I understand what the characteristics and the symptoms of type one are, yeah, he was doing all of them. He was excessive thirst. He was excessive ping. Then the vomiting came, the weight loss was there, all that stuff. But I feel like a lot of those symptoms go hand in hand with babies. And they want babies to have wet diapers. They want babies to start losing that chunky baby weight and transitioning to toddlers when they're moving. They want you to be eating all the time like they want that so you don't look at that as like, my baby's weird. He's doing something he's not supposed to do because you want them to be growing. You wanting them to be doing that type of stuff. So now that I know, yeah, he had all of them like he truly did, but until it became horrible, like that day, I would say eight hours, he went from like a grumpy, cutting teeth toddler, to like, he can't keep his eyes open,
Scott Benner 7:26
right? And was he actually in a coma by the time you got to the hospital?
Marley 7:30
Yeah, he was. So what happened is, we took him to the urgent clinic, because it was like five o'clock. His pediatrician's office was closed. We took him to the urgent clinic. They were like, he has a double ear infection. We're gonna give him a rosefin shot. So they gave him a shot. They made us sit there. It was his first ear infection he had ever had. They gave him the infection or the rosefin shot, and they were like, sit here, and we're gonna monitor him to make sure, you know, nothing happens from the shot. So we sit there. He starts vomiting on me, which was weird, because I had never seen him throw up before, other than the egg allergy prior. And so everything got good. He kind of got a little bit more perky, so he wasn't as lethargic at that point. And then we drove home from the point where we got into the car and got home, he probably threw up six times, and when we got home, he was, like, grabbing water. He was trying to grab anything. And he's 12 months old. He can't even walk at this point. Yeah, he's just grabbing it, guzzling it down, then projectile vomiting. That's when my husband was like, we're taking him to the ER, like, we're going right now. And we finally went in and, yeah,
Scott Benner 8:37
I interviewed an adult once that the story in their family was that she was diagnosed as a toddler, and when they finally figured out something was going on, they caught her drinking out of the toilet.
Marley 8:49
And I think Bane truly would have done that, because, sure, I've never seen it was like a crack addict trying to get their drug like, that's literally what it looked like. No, I imagine it was rabid. He needed
Scott Benner 9:01
it. Tell me something when he's in when they tell you he's comatose. Like, what do they explain to you about the process and the outcomes they're hoping for and what might go wrong? Like, how do they explain all that to you?
Marley 9:14
So we live in a pretty small town in Mississippi. We do have a hospital. We have an emergency room. So we took him to that small hospital, and we probably were there. It felt like forever, but we were probably there 45 minutes, and the doctor, literally, they swabbed him, they chest x rayed him, whatever they the doctor walked in, and he literally, honestly, it was kind of hurtful to me. He walked in, he was like, your son's got diabetes. Like, that's exactly how he said it, and your mouth just drops. You look at him, like, Are you freaking kidding me? Like, are you serious? He has diabetes? What went through my head was, like, how does my son get diabetes? I knew what type one was. I had a friend growing up in high school that had type one. My husband has relatives with type one. But I feel like my mind automatically went to type two and like, How does my infant son have diabetes? He's only eating organic food. He's breastfed. Like, I've tried to be the perfect mom. How does this happen, right? So when he walked in, he was like, I didn't realize, you know how serious it was.
Scott Benner 10:18
Yeah, your head didn't jump to type one, no. Yeah, right.
Marley 10:21
And he was like, He's in DKA. And told me what DKA was. He was like, we're calling an ambulance. He's getting on an ambulance, and the first bed that opens up in an ICU, you're going. So they called Le Bonner in Memphis, they called our hospital in Jackson. They called all the children's hospitals that were within four hours from us. And the first one that got a bed, we went to it, and the doctor came in. He was like, actually, your son is so bad, basically, that he's getting on a helicopter and we're airlifting him to the
Scott Benner 10:51
bats they life flighted him. How to where? Where do you go to? We went to
Marley 10:55
children's of Mississippi, or also known as batson's Children's Hospital in Jackson, Mississippi, and praise God, they let me get on the air or the helicopter with him, because I don't think I would have made it, driving three hours from where we are to him. But yeah, it was a whole thing.
Scott Benner 11:11
No kidding. Hey, do you have any autoimmune issues, hypothyroidism, celiac, you got any eczema, vitiligo,
Marley 11:19
nothing. Don't I do think my hut, we have went to every type of specialist known to man. For my husband, he gets chronic mouth ulcers, like 12 at a time. He's had everything under the moon done. He's seen every kind of doctor possible. He's been tested for autoimmune it never rings up that he has any audio autoimmune disorders, but I truly do think he probably does, and they just can't figure out what it is the
Scott Benner 11:45
type one's in his family line, though, so this is what type one yeah, that I'm gonna tell you. I don't, it doesn't matter if they're destined or not, like it's autoimmune runs in his side of the family as type one diabetes. I don't think it's crazy that your that your son has it.
Marley 12:01
So, yeah, I definitely think it was a genetic thing. It's all of the cousins he has on his grandmother's side. I think it's his second, third, and now some of his fourth cousins are all getting type one diabetes. Wow, how about that, which is insane, but
Scott Benner 12:15
it's the bane of their existence. Yeah, literally, yeah. By the way, there's so many titles just with your name, Scott. We could easily call this pain in my existence. We could easily call this Marley and Me, because you and I are talking. Oh yeah, there's, there's 1000 ways to go here, but we'll figure it out as we as we head through. Okay, so you're, can I ask how old you are when this happens?
Marley 12:36
I was 27 Okay, first child,
Scott Benner 12:40
young yourself. How long have you been married? We've been married for five years. Wow. Okay, so yeah, I mean, you're still your young person starting a family. It's not what you're expecting. Obviously. No, no for sure once. Well, I guess my question should be, how long did that Tacoma State last
Marley 12:59
so once we got airlifted to Batson, they do triage different, like, they bring you to the, er, that's where it's so it's also a learning hospital, because it's our state's Children's Hospital, so it's all residents and doctors and nurses. Like, it's, yeah, hundreds of people. So when we got there, hundreds of people start coming in. They're talking to me like, Oh, my God, we never see 12 month olds in DKA. We never see babies with diabetes. Like, so I'm feeling like, awesome, a unicorn that has a horrible thing on it. Like, I just felt I was like, What did I do? Like, what did I do to deserve this?
Scott Benner 13:38
Help me? Marley, did it feel, you know, you mentioned Jesus already, so, like, Did it feel like something got given to you or done to you? Or did you feel like you did something wrong? Like, I'm trying to figure out what the feelings were that you were fighting with, right then,
Marley 13:51
I think the feelings I was fighting for, besides, like, Is my child gonna stay alive? Is how does this happen when I'm such a type, a perfectionist type person, and I tried to do everything perfect, and then that something like this tries to take his life. It was just, it was horrible, yeah, like it really was, did
Scott Benner 14:15
it give you that, that kind of lost feeling, like it doesn't seem to matter what I do, like this. How did this horrible thing happen? There's nothing you can do about it. Yeah, I know how you feel. I hope you're having luck giving that away. You're not carrying that around with you. Are you?
Marley 14:30
Oh, no, we're good now. Good, good, good. How long ago was this? So he was diagnosed on August the 16th, so he's coming up on his one year of we've been dealing with
Scott Benner 14:39
this. Yeah, very recently, no kidding, shit show for sure. You know, obviously pulls through, and he's doing well and like, how long is he in the hospital for? And when they send you home, try to go back to that time and tell me about the understanding you have of your new responsibilities when you think of a CGM and all the good that it brings. In your life, it's the first thing you think about. I love that I have to change it all the time. I love the warm up period every time I have to change it. I love that when I bump into a door frame, sometimes it gets ripped off. I love that the adhesive kind of gets mushy sometimes when I sweat and falls off. No, these are not the things that you love about a CGM. Today's episode of The Juicebox podcast is sponsored by the ever since 365 the only CGM that you only have to put on once a year, and the only CGM that won't give you any of those problems. The ever since 365 is the only one year CGM designed to minimize the vice frustration. It has exceptional accuracy for one year with almost no false alarms from compression lows while you're sleeping, you can manage your diabetes instead of your CGM with the ever since 365 learn more and get started today at ever since cgm.com/juicebox one year, one CGM. Today's episode is brought to you by Omnipod. It might sound crazy to say, but Summertime is right around the corner. That means more swimming, sports activities, vacations, and you know what's a great feeling, being able to stay connected to automated insulin delivery while doing it all. Omnipod five is the only tube free automated insulin delivery system in the US, and because it's tube free and waterproof, it goes everywhere you do in the pool, in the ocean or on the soccer field. Unlike traditional insulin pumps, you never have to disconnect from Omnipod five for daily activities, which means you never have to take a break from automated insulin delivery. Ready to go. Tube free. Request your free Omnipod five Starter Kit today at omnipod.com/juicebox Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox type that link into your browser or go to Juicebox podcast.com and click on the image of Omnipod right at the bottom, there is also a link right in the show notes of your podcast player.
Marley 17:03
So he was in the pediatric ICU for about three ish days. I would say they checked his blood every hour, took two vials of blood every four hours, and basically, I would say he was like in the coma type state for at least two days, didn't wake up, wasn't eating, woke up the third day, and you know, they don't allow you to eat until they're ready for your sugar, like your sugars have to be down for them to see how. I guess it's working. I don't know. I was so confused at that point, but he finally was allowed to eat on the third day, and then that's when his sugars were finally better, his bicarb, or whatever those words are, they use the blood gasses they were checking his gap was closed, and all that stuff. And they moved us to like, they call it their education floor, which it was like going from the nicest hotel to the crappiest hotel on the block. It was horrible. And that's where they taught us, around the clock, how to give insulin, how to dose for carbs. And like, I felt so lost, and I asked that nurse probably a million times, like, Okay, show me this math again. Like, what am I supposed to do? How am I supposed to draw this insulin? He's getting one unit of Lantis, like, I can't even find one unit on this insulin pen. Like they're having to give us half unit syringes. And the nurses were so they're like, we don't see this in infants. Let me go try to find a half unit syringe, because we don't ever use those.
Scott Benner 18:35
And, yeah, now you're talking about, you're telling me a lot of things that happened to us too. Like, I'm hearing a lot of similarities,
Marley 18:41
even the doctor, like his endocrinologist, she's wonderful. We still use her. She was with us when he was there, when he got diagnosed. We still use her. She's wonderful. She's like the head of the teaching medical university at that hospital. And she honestly was my lifesaver. Like every time she would come in, she would let me know, like, he's gonna be okay. He's gonna if he wants to be a pro football player, he'll still be a pro football player. If he wants to climb mountains, like he'll still do that, like it's okay. You can do whatever you want with him. He's gonna be fine. He's just in a
Scott Benner 19:18
horrible state right now. Yeah, Was that helpful to you, to make you feel better, for sure, especially
Marley 19:23
hearing it from somebody that you hear is like a diabetic guru. And she, this is her job. She understands this. So you feel like her telling you that is like, kind of like reassuring, in a way, sure,
Scott Benner 19:37
hey, I mean, and this is only I would imagine, like, a handful of hours or days removed from you thinking he might not live right? Like, yeah, yeah. I'm not putting words in your mouth, right? You guys weren't sure. You guys weren't sure he was gonna live right, yeah. Can I ask a little bit about the interpersonal during the hospital stay between you and your husband? Because you're young, you've been married. Quite a long time, so you've got a little rhythm going, but you haven't been married 20 years. Did you ever have time to assess him or him you about how you guys were dealing with this, or did you feel like because I'm trying to say that, like when, when this was happening between me, my wife, my daughter, and my my son, who was older and not in the hospital with us at the time, I don't know how to explain that I felt like I was insulated inside of a bubble, and I wasn't really connecting with my wife or my daughter like a lot. Felt like it was happening to me, while it felt like a lot was happening to my daughter, and I could look over at my wife and see that she was in trouble, and I didn't have the ability to worry about my wife and, like, and I don't feel like she had the ability to worry about me. So it felt like we all insulated ourselves into our own bubbles. Like Arden was just in a dead stare, basically, you know, just, and I was just digging in on what was happening. What was my responsibility? You start thinking about how it's going to change your life, her life, like you said, like, what are you going to be able to do? And then I looked at my wife, and I felt like she was going through the same thing. Like, the last thing you could do was, like, almost worry about another person in that situation. I was wondering if you had a similar experience. I have always disliked ordering diabetes supplies. I'm guessing you have as well. It hasn't been a problem for us for the last few years, though, because we began using us Med, you can too us med.com/juicebox, or call 888-721-1514, to get your free benefits. Check us med has served over 1 million people living with diabetes since 1996 they carry everything you need, from CGM to insulin pumps and diabetes testing supplies and more. I'm talking about all the good ones, all your favorites, libre three, Dexcom, g7 and pumps like Omnipod five, Omnipod dash tandem, and most recently, the eyelet pump from beta bionics, the stuff you're looking for, they have it at us. Med, 888-721-1514, or go to us. Med.com/juicebox, to get started now use my link to support the podcast. That's us. Med.com/juicebox, or call 888-721-1514,
Marley 22:19
yeah. So we definitely had a similar experience like I was worried about myself. I was worried about our family in a hole. I was worried about Bane, obviously, continuing to live and fight through this and then also being poked and prodded, and it was horrible. I was worried about breastfeeding him and what that what this hospital stay would do so many I'm a very Control Freak type of person. I like to have control. I like to kind of just be on top of my honestly. And I just like to be a leader. That's just how I am. That's the personality I have. And so I was worried about Chandler, and I was worried about his feelings, and obviously he was worried about mine, but I felt like we were both so broken at that point, like we just had to put our head on and learn what they were teaching us.
Scott Benner 23:08
Honestly. Yeah, I think the first time I grew up pretty broke and, like, my dad left pretty early and stuff like that, and I felt like it was the first time as an adult, or the first time since my father and mother got divorced, where I understood that, like, concept of like, you just put your head down and go, Yeah, you know what I mean? Like, there's not a lot of time to, like, sit around and think about how you feel. There's something that's so, like, shocking happening in front of you that needs handling, and you just like you. I don't know if it's conscious, but I think it's a decision you make. Like, is this gonna knock me over, or am I gonna keep going?
Marley 23:43
Yeah, and it's something you will not know how it feels until you experience that. Like, it's the most horrible, gut wrenching feeling. But you don't have time to sit there and sulk and worry, and you just don't have time. Like, do you want your child to be alive? Do you want to learn how to keep them alive, then you just got to keep going.
Scott Benner 24:03
Yeah. Since then, I haven't felt like that. Since then, up until the day I realized my mom was gonna die. Oh, man, I'm sorry. No, no, those are the two times that I felt like whatever that is, yeah, yeah, like that. How would I describe it? It felt like all the fibers inside of me were being torn apart, yeah?
Marley 24:23
Like you're just numb to it. Yeah? It was really crazy.
Scott Benner 24:27
Okay, so you're a self confessed control freak, so that's nice. I'm assuming, I'm assuming you're looking for ways to give that away right now. Yeah? But so your home, you were syringes, like half unit syringes. That's how they sent you home.
Marley 24:42
They didn't send us home on a pump, which I'm now in, that Facebook group called like diapers and diabetes. That's where I learned everything about caring for an infant with diabetes. It's not from the
Scott Benner 24:53
hospital at all. Lot of people speak well about that Facebook group, that
Marley 24:57
Facebook group saved me like truly. But what? Left on Humalog Jr insulin pins with like a correction factor and a carb ratio. That was horrible. And then we left on Atlantis and vows because insurance issues, they wouldn't pay for pins for some reason, because nothing is cleared for infants with diabetes, apparently,
Scott Benner 25:21
yeah, no, no, there's, yeah, nothing's available for them.
Marley 25:24
It was horrible, like, you get home from this horrible hospital stay, and now you're, like, traumatized by even giving your kid food, and then you're fighting insurance on the phone for Dexcom, because they're not FDA cleared for one year olds. But I can't help, my one year old has a diabetes.
Scott Benner 25:42
Yeah, right, that's not my fault, yeah? Like, I didn't ask for this. But is that, when you learned about that, the doctor can write the prescription off label and you can just use that stuff?
Marley 25:51
Yeah? So our doctor, she's like, she'll do a PA in a heartbeat, and she'll fight with those in like, she's gotten everything, everything approved for him. That's awesome. Praise the Lord. Because, yeah, between me and her, they didn't have a chance.
Scott Benner 26:05
What do you guys do for a living? Like, did somebody have to change jobs or do like, I mean, it's a lot of work raising an infant with type one.
Marley 26:12
So, so before all of this, my husband has always worked from home. He is a server engineer. He works on computers. I couldn't tell you what he does, because I don't really understand it, but that's his thing. He loves it, and he's always worked from home. I am a speech language pathologist. I worked in a pediatric private practice seeing kids with all types of disabilities, but also just normal kids with speech issues or whatever. I worked there full time Monday through Thursday, and then the day he got diagnosed. Well before he got diagnosed, my husband was at home, and his mom would keep Bain at our house, okay, his first year of life, and they kept calling me like, something's wrong with Benner, like, you need to come see him. He's sick. We're gonna take him to the doctor. I'm like, maybe he's just tired of y'all like he probably just wants his mom, so I'm just gonna leave work and come so I went home, and that's when all came loose, and we took him to the hospital or whatever, and that day, I never went back to
Scott Benner 27:11
work. No kidding. Has that hurt your family? It did hurt our
Marley 27:15
family for a little bit. I feel like more mentally, because it's hard when you're going from a two income home to now, you don't know what the future holds, because that's what we didn't know what the future holds. Probably two months after he got diagnosed, I did transition from in person speech therapist job to now a teletherapy speech therapy job. So I do work a part time speech therapy. Awesome.
Scott Benner 27:41
That's awesome. Yeah. So tell me about what you've learned about taking care of type one and an infant. Over the last year,
Marley 27:47
I've learned that it is so unpredictable, it is unknown, and no one understands it, unless you have dealt with it, including the doctors. That's what I've learned.
Scott Benner 28:01
I remember. So I don't know how much Bain weighed when, before he was diagnosed, big boy, oh, how much do you
Marley 28:08
remember? I think he weighed like 25 or 26
Scott Benner 28:11
pounds. Oh, that's crazy. So Arden was two, she weighed 19 pounds. And when we came out of the hospital, I think she weighed 17, yeah, my head lost a lot of weight too, yeah. And then in that coming time i I'm telling you, because you don't know this, but, like, I think people who listen might know this already, but I realized, like, you know, like you said, like, a unit, I can't use these unit syringes. And we only had three, this was 2006 so they only had, we had a syringe and vials and we got a meter. Those are the things that we got, right, right? So unit that's not working, and doctor's like, well, here's half a unit needles. Like, all right, great. They didn't work either. Like, they were too much. So I didn't know what to do. I was a stay at home dad at the time, by the way, so I was me, like, 24/7 trying to take care of it, pretty much. And I kept thinking, like, you know, in the beginning you're like, well, the measurements are in half, so that's how it works. But then one day, you're like, This is bullshit. Like, I don't need a half a unit here. And I couldn't figure out how to, like, get a system going, so I took some insulin, and I squirted it into like a dish, and then I put food coloring in it. Oh, my God, all right. And then I sat, and I practiced, with my eyes closed, pulling on the plunger like so slightly that when I pushed it back out, a big drop would come out like so I was trying to teach myself how to pull in a drop of insulin, and you couldn't read it on the syringe, so it was all about feel that's why I would just do it with my eyes closed. I'd pull it and then I'd try to remember how I did it. I'd squirt it back out, and I put the food coloring in so I could see it better. And I was like, okay, and I got them to the point where I was really consistent. Then, of course, I. Threw away the insulin that had the food coloring in it, and, you know, and then the next time I Bolus, I did it like that, with, like a drop of insulin,
Marley 30:08
yeah, that's how it was for Benner. Like it was, it felt like it was a tear
Scott Benner 30:12
drop, yeah, it was just an insane moment where I was, like, even this half a units, way, way too much,
Marley 30:19
yeah? Like it was either, I felt like I was either not giving him enough, or it was too much, and I was having to carve him up to deal with the insulin in his
Scott Benner 30:29
body, yeah, but you have a CGM now, right? Yeah. So we left the hospital
Marley 30:33
with the Dexcom and on insulin pens and whatever, and then he got on a tandem movie in April, yeah. And it's a game changer. I imagine it is.
Scott Benner 30:45
I don't think we got our first CGM. I mean, if she was two and she was diagnosed, like, maybe for four years, I cannot imagine I was out of my mind by then. I was struggling to keep his or keep her a 1c in the like, mid to high eights, yeah, and nobody was telling me what to do. Like, it was all just, it just all felt random. It really just like, maybe the worst part of my life, like, you know, if I was sure, yeah, if I was a control freak, I would have been out of my mind, because I didn't. I was like, I didn't feel like I was controlling
Marley 31:17
anything, yeah, I'm sure, especially like having to poke her constantly. Like, I still poke Benner a lot, and we have a Dexcom,
Scott Benner 31:25
yeah, no, I think Arden probably finger pricks and needles in those first years, like, up until when she got a pump, which was and she got a pump when she was like, we got an Omnipod when she was like, four something. It was a couple years in, but counting finger pokes and, you know, and injections, I must have stuck her 10,000 times, yeah, bless her, yeah. Just really crazy. And to this day, like it's, she's not good with needles, yeah?
Marley 31:53
Kind of how Benner was at first. Like he never really fought me because he was so small, and it was just, you know, we got to do this type of thing. He's always been pretty good with needles, but at first he would kind of like, whimper and, you know, like the normal, like, I'm scared of this type thing. But, yeah, it's horrible. It's a horrible feeling when you're a parent and you're feeling like you're hurting your child,
Scott Benner 32:15
yeah. Okay, so how long did you get the Moby, by the way, let me just say this tandem diabetes.com/juicebox. Dexcom.com/juicebox, use the links. They're in the show notes. You're gonna laugh because you're on tick tock you. Like, I know what he's doing. I'm Team tandem, all the way awesome. So how have things changed? I assume just him putting on weight probably has made things easier. Like, where are you today, with the with the management?
Marley 32:36
So his a 1c when he was diagnosed was like, 9.8 I want to say. And then in March, before starting the 10 of Moby, it had only went down to 8.9 and that was strictly on pins and bowels. And that's, I feel like I'm pretty on top of this stuff, but I feel like that's just because pins and bowels do not work for infants and toddlers, like just period the end, it just doesn't, unless you're doing diluted insulin.
Scott Benner 33:01
Okay? It was just such a little amount that it was never quite enough. I was having
Marley 33:06
to give him 13 shots a day. Oh, that's just too much,
Scott Benner 33:10
you know what? I mean, yes, you're giving these little little bits to hold down the higher blood sugars.
Marley 33:14
Yeah? Like he just, he needed those micro doses so that when we went to our six month think it was really seven month appointment to our Endo. I was about to tell her, like, okay, we're doing a pump. And she was like, Okay, you ready for a pump? And I was like, Yeah, we're ready for a pump. So we chose to do the tandem just from personal I just had talked to a bunch of different moms that I've met through Tiktok and socials and diapers and diabetes at Facebook group and seeing what works. And I was like, let's try the Moby. If, for some reason, the tubing doesn't work, we'll switch to the pods. But I want to try the Moby first. The algorithm, they say, is wonderful. It's lightweight. I love the ability that he can unclip it from his body. And you know, we'll just try it. So we started it in April. We go back to the end of, actually, at the end of this month. So I don't know is a 1c right now, but I think it's been a game changer. Like he's in range 90% of the day. He's doing really good with it. He's a he's a trooper. Like it doesn't phase him. Those site changes. He don't mind it. He don't care. He wants to help. And those micro doses are just everything, like they truly
Scott Benner 34:27
are. Those algorithms are awesome. Does he wear it on body, or does he clip it to his clothes? Or do you bounce back and forth?
Marley 34:33
So we kind of bounce back and forth. We'll use like, tandem pouches on his back. I do it on his belly, because his arms are so small, and then his legs, he's such a rough toddler, that every time I put it on his legs, it's falling off within 30 minutes. So we'll do those. And then we use the Spot belt a lot, and we clip it around his waist and put the spot belt either over his clothes or under his clothes. Nice. I kind. Of go between the two. Like, one week we'll do the pouches. One week we'll do the belt, just to give his body a little bring
Scott Benner 35:06
How do you divide the work? Your husband still works at home, right?
Marley 35:09
So, yeah, Chandler worked from home, and we just kind of tag team it. I feel like I control more of his treatments, his blood sugar treatments, like, if he's low, I'll kind of tell Chandler what to do, like, give him this many or give him this many carbs, or whatever. Chandler's really good about just helping. Like, if I need anything, if I need him to go change a Dexcom, he just kind of lets me kind of help him, lead him into whatever he needs to do. Or if I want to take control, he's like, go for it. Like you, do you? Do you?
Scott Benner 35:43
Has this year impacted your plans for your family? Are you considering more kids? Were you before
Marley 35:49
it definitely did. I feel like I definitely don't think I would have had another child by now, because I wasn't the kind of person that wanted to one or two or that toddler and infant. I didn't really want that, but it definitely hindered my mind and thinking that I want another kid, because there's so much that goes into diabetes, especially those first few months, you feel like you're drowning. But now that we're a year into this, and it just feels routine, I'm not saying it's not hard, because it's just as hard as it was day one, but it's more routine and we're more comfortable, and I don't feel as scared of insulin, and I don't feel as scared of trying new things, changing his pump settings. I think I could see myself in the future, having one more, only one.
Scott Benner 36:37
Now, if the reality became that a second child also got type one. I think I would die. I was gonna say it's not gonna change your reaction to it,
Marley 36:45
right? No, no, no, right. I could handle it, but I think I would like, want
Scott Benner 36:49
to be like, my guess there's got to be worse people on the planet, because something bad happened to one of them, please.
Marley 36:56
Yeah, I've seen kids, our families on Tiktok, and they have, like, multiple kids with diabetes. I'm like, Y'all are troopers. Like, I don't know how you do it.
Scott Benner 37:06
When we were growing up, there was this, this old guy. I don't want to say where I knew him from, because I want to be very vague, right? There's this older man, and he was just beyond a curmudgeon. He was just a prick, you know? And he went on and on. Like, didn't matter how old he got, how sick he got, nothing ever happened to him. It felt like he was gonna live forever. And few of us used to say that, you know, all over the world there are terrible people doing terrible things yet, and I'll just, uh, I'll have my friend Rob bleep this out. So we used to say, all over the world there are terrible people doing terrible things, yet still walks the earth,
Marley 37:42
which is true. Like, how does my baby end up with diabetes? And there's like, killers on the
Scott Benner 37:47
street? Yeah, we're shooting missiles at people and, like, your kids getting type one and you but did that shake your faith at all?
Marley 37:55
No, it really didn't. I feel like it kind of made me lean into it, because when we were in that helicopter going to Batson and in the middle of the night, and all you have are your thoughts, because your baby's in the back of the helicopter with the medics. I felt like I was like, God, like, if you're real, which I know he is, but God, if You're real, you will save my baby, and I will do I will literally be anything you need me to be, like, I just need you to save my baby.
Scott Benner 38:28
Yeah, I'm glad he's okay. That's wonderful. Also, what a bummer, like, because how often are you going to take a $10,000 helicopter ride and not get to really enjoy it? So, right?
Marley 38:38
Like, I remember sitting in that helicopter, in the pilot. He was so nice, but he kept, like, trying to make small talk. And he was like, what do you do for a living? I'm like, I'm a speech therapist, speech therapy. And I'm like, I don't care. My kid is dying in the back. Like, stop talking to me.
Scott Benner 38:56
You should have said I'm married, and my kids back there dying. It's inappropriate for you to be hitting me on me like this, because
Marley 39:02
I stopped. On me like this, because he's like, when we got in the helicopter, he's like, Okay, I know this is just standard, but he's like, don't touch these buttons. Don't touch the door until I unless I tell you to, don't try to jump out. I'm like, I'm not gonna try to jump out, my babies.
Scott Benner 39:17
I'm not gonna try to jump Hey, you know what? Don't make fun of him. I have somebody in my house this week doing some work, and I literally put my finger in wet, like plaster. I looked at it, and I'm, I fairly intelligent person, and I reached out and I touched and I thought, Why the hell did I do that? Anyway? He's probably had somebody just like, reach out, and he's like, don't you're gonna kill us.
Marley 39:41
Yeah. I'm like, Honey, I'm not worried about your doors, your buttons. Like, just get me to the damn house.
Scott Benner 39:46
Let's just get going. So you did something, I mean, 20 years removed from me doing it, but you did something that I did, too. And I'm wondering, because I'm gonna I'm an older person now, like, I'm not that old. But I'm like, you know, I'm not 27 you know, the year after Arden was diagnosed. You know, pretty much exactly a year later, maybe not even maybe it's like six months later, if I'm thinking about it correctly, I started writing a blog before a blog was really a thing. I'm not saying I wrote the first blog in the world, but there were not a lot of them when I started doing it. And the technology just wasn't really there. I think WordPress was probably the only way that people knew about to put a blog up at that point. I did it initially because I had tried to raise money for a JDRF walk, and I remember just, like, raising, like, $1,000 and thinking like, Well, this was lame. Like, put a lot of effort into this. I wanted people to know more about it. I also wanted to try to help. I had that, that kind of overwhelming feeling, like, I'm not a doctor, but I want to do something. Yeah, you know. And then I didn't really raise much money, and I was like, Oh, this is a bummer. And I thought, well, maybe, maybe people didn't donate because they didn't understand it, and I'll, like, try to help them understand it more. And I started writing about it. And then I have to say, over the, I think over the next nine years, we did the walk for 10 years, we don't do it anymore, but I think we're doing our first one this year. Yeah, I raised $50,000 total in 10 years. That's awesome. Yeah, it was pretty, was pretty great using basically that blog to, like, try to educate people about what type one was like, Yeah, but then it became something I didn't expect it to be. It was almost like its own little community. And 2013 rolled around. So I had been writing the blog for six years, and I'm just gonna tell you, like, I got a book I got a book deal. I was writing a book blogging was kind of dying at the same time, like, people just weren't really reading the way they used to. I mean, the book took a year to write, it came out, etc, and then I was out, like, doing media for it, and I just started, you know, that led to me having an idea about making a podcast. And I think, again, I was maybe a little ahead of the curve, like, you know, making a diabetes podcast, and I launched that in, like, January, again, 2015, so now that's I've been doing it for 11 years now, and I feel like I've built a pretty kind of immense community of, you know, yeah, you definitely have for people. Thank you. I watch it help people all day long, every day, seven days a week, you know, 365, days a year. It's pretty massive and sometimes hard for me to even conceive of of all the people. It's touching, but at the same time, like, I didn't do any of that on purpose. Yeah, that's kind of how we were, yeah. And the technology wasn't, like, like, the blogging technology was not a thing. And there were podcasts going for, like, a couple of years, but I was pretty again, sort of at the edge of it, like, you know where it was going on. So you decided to, like, pick up your phone and start a Tiktok, and I'm wondering why you did it. Like, what was your goal and what has it become?
Marley 42:56
I've always been like, a Tiktok theme. I never posted, but I'm a doom scroller. Like, that's what my husband calls it. Like I will sit there and scroll on Tiktok and watch the dumbest videos all day, every day, and me and my best friends send videos to each other. So I've always had an account. Well, Bane had probably been diagnosed four months, five months, and I think he was, like, 15 months old. I took a video of me putting on a Dexcom for him, and I actually was sending it to my mom because she had never seen me put a Dexcom on him, and I was on Tiktok, and I was like, I'm just gonna post this to show my 50 friends. That's all that followed me. 50 had 50 followers. They were all my personal Facebook friends from, you know, high school, college, whatever. And I posted it, and the video went like, mega viral, like within I still had notifications on at that point. I started getting all these DMS and requests, nice comments, horrible comments. I mean, you know everything, sure. And I think the video now has like 3 million views, maybe 4 million something like that. But, I mean, it was crazy, yeah. And just from seeing all the comments on that video, it was very it showed me that no one understood diabetes and toddlers like, I mean, just, you know, the normal stuff, like, why you feeding your kid junk food? How to get diabetes? Or, I didn't know babies could get diabetes. How do babies get like, it was just, you know, the dumbest questions. But I understood, because people don't understand that. Yeah, you get why would they understand it? They've never been through it, yeah. So I think the next video I posted was, like, telling people how he got diagnosed, because people would be like, I'm glad you called it so early, or I'm glad you figured out. I'm like, we didn't catch it early, like he was in DKA, yeah, we called it the last the last second.
Scott Benner 44:54
This wasn't early. This was a day before he died, yeah, literally, like, we
Marley 44:58
called it the last second, just. Because he's 12 months old. He was he had, like, hours, probably, of his life left. So we started posting on Tiktok, and it grew so fast. And I think it continues to grow, because people now love Bain, and they see his language developing. They see him getting his own little personality, and him learning about, he's learning about diabetes, and he's learning the things you know, that we do on his day to day life. We change Dexcom, we change sites, we count carbs, we we get our Med, you know, like he's just understanding those things, and people like to follow along with that, because I'm not going to give myself props, but I am a speech therapist. So his language is like crazy. He talks in five word sentences, and he's not even to get so people just are like, how do you do like? How does he talk like this? How does he tell me about diabetes? How does he let you just put his Dexcom on? He don't fight you. So I just started kind of like posting little snippets, and it just grew so fast. I followed one other person on Tiktok that had diabetes at that point. Her name on Tiktok is called wonderful wells, and her son is, like three. He has diabetes, I think he was four at the time, but he got diagnosed when he was three. And she would post videos of putting sites on him or whatever, and just informing people. And I think she, at that point, she was raising money to get a diabetic alert dog. And so, you know, when you're in that hospital, the first thing I did was join diapers and diabetes Facebook group. I joined the Juicebox podcast group because everybody on diapers and diabetes told me to do that. And I ordered a sugar pixel, and then I looked up diabetes on Tiktok like that's just what I did.
Scott Benner 46:45
That was it just got going, How many followers do you have?
Marley 46:47
No, I think we have 127,000
Scott Benner 46:53
Can I let me? I'm gonna try to find it while I'm talking to you. So I'm oh my gosh, a person. I am not good at tick tock. I just want to say that
Marley 47:01
immediately I love I'm just the oh, we're have 128,000
Scott Benner 47:05
what's your what's your like? How do I
Marley 47:08
at Marley, M, A, R, L, E, E, Brandon and I, I feel like now I don't post as much diabetic stuff. I do post diabetic stuff, but I post a lot of him just acting crazy.
Scott Benner 47:20
Okay, it's, uh, are you in like a black and white striped top? Yeah, yeah, yeah, okay. Well, now you have one more follower. Congrats. Thank you. Thank you. You have a follower of the guy that's not on tick tock very often. Wow. Yeah, you have almost 5 million likes total on your on your videos.
Marley 47:37
That's crazy. Yeah, people really love bang, like they really do. So when
Scott Benner 47:41
I started doing this, it was a, it's a blog, right, yeah, and there'd be one static picture. And to be truthful, after Arden hit a certain age, she came to me and she said, I don't like looking like a baby on the internet, yeah. And I was like, okay, so we removed every picture we could find from the blog and everything. And even, like, the mast head of the blog got changed so that it was used to be a photo of her, and then it became like a caricature. And then eventually the blog's not called Arden's day anymore. It's called Juicebox podcast.com now. Yeah, right. I mean, obviously he's very little right now, and the world's a different place, and kids are more accustomed to this. This is like a thing. But do you have you given thought to, like, how long would this go for? And at what point does he get an opportunity to say, like, I don't want people seeing this. Or like, I mean, it's got to go on through your head, right?
This episode was too good to cut anything out of but too long to make just one episode. So this is part one. Make sure you go find part two. Right now it's going to be the next episode in your feet. I'd like to thank the Eversense 365 for sponsoring this episode of The Juicebox podcast, and remind you that if you want the only sensor that gets inserted once a year and not every 14 days, you want the ever since CGM, ever since cgm.com/juicebox one year, one CGM, Arden has been getting her diabetes supplies from US med for three years. You can as well us, med.com/juicebox, or Paul, 888-721-1514, my thanks to us, med, for sponsoring this episode and for being longtime sponsors of the Juicebox podcast. There are links in the show notes and links at Juicebox podcast.com to us, med and all the sponsors. Summertime is right around the corner, and Omnipod five is the only tube free automated insulin delivery system in the United States, because it's tube free, it's also waterproof, and it goes wherever you go. Learn more at my link. Omnipod.com/juicebox That's right. Omnipod is sponsoring this episode. To the podcast, and at my link, you can get a free starter kit. Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox, I can't thank you enough for listening. Please make sure you're subscribed or following in your audio app. I'll be back tomorrow with another episode of The Juicebox podcast. If you're looking to meet other people living with type one diabetes, head over to Juicebox podcast.com/juice, cruise, because next June, that's right, 2026, June, 21 the second juice Cruise is happening on the celebrity beyond cruise ship, it's a seven night trip going to the Caribbean. We're going to be visiting Miami Coke, okay? St, Thomas and St Kitts. The Virgin Islands. You're going to love the Virgin Islands. Sail with Scott in the Juicebox community on a week long voyage built for people and families living with type one diabetes. Enjoy tropical luxury, practical education and judgment, free atmosphere. Perfect day at cocoa Bay St, Kitts st, Thomas, five interactive workshops with me and surprise guests on type one, hacks and tech, mental health, mindfulness, nutrition, exercise, personal growth and professional development, support groups and wellness discussions tailored for life with type one and celebrities, world class amenities, dining and entertainment. This is open from every age you know, newborn to 99 I don't care how old you are. Come out. Check us out. You can view staterooms and prices at Juicebox podcast.com/juice cruise. The last juice cruise just happened a couple weeks ago. 100 of you came. It was awesome. We're looking to make it even bigger this year. I hope you can check it out. If you're looking for community around type one diabetes, check out the Juicebox podcast. Private Facebook group Juicebox podcast, type one diabetes. But everybody is welcome. Type one type two, gestational loved ones. It doesn't matter to me. If you're impacted by diabetes and you're looking for support, comfort or community, check out Juicebox podcast, type one diabetes on Facebook. The episode you just heard was professionally edited by wrong way recording, wrong way recording.com, you.
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