#1618 T1Daredevil

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Crew, 13, diagnosed with type 1 at 7, is a fearless mountain biker. He's joined by his mom Marsha (at the end of the hour).

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Welcome back, friends. You are listening to the Juicebox podcast.

Crew 0:14
Hi, my name is crew. I'm 13 years old. I got diagnosed for diabetes at seven years old,

Scott Benner 0:24
I created the diabetes variables series because I know that in type one diabetes management, the little things aren't that little, and they really add up. In this series, we'll break down everyday factors like stress, sleep, exercise and those other variables that impact your day more than you might think Jenny Smith and I are going to get straight to the point with practical advice that you can trust. So check out the diabetes variable series in your podcast player or at Juicebox podcast.com Please don't forget that nothing you hear on the Juicebox podcast should be considered advice medical or otherwise. Always consult a physician before making any changes to your healthcare plan or becoming bold with insulin.

This episode is sponsored by the tandem Moby system, which is powered by tandems, newest algorithm control, iq plus technology. Tandem Moby has a predictive algorithm that helps prevent highs and lows, and is now available for ages two and up. Learn more and get started today at tandem diabetes.com/juicebox this episode of The Juicebox podcast is sponsored by us Med, US med.com/juice box, or call 888-721-1514, get your supplies the same way we do from us. Med, the episode you're about to enjoy was brought to you by Dexcom, the Dexcom g7 the same CGM that my daughter wears. You can learn more and get started today at my link, dexcom.com/juicebox,

Crew 2:04
hi. My name is crew. I'm 13 years old. I live in Lawrence, Kansas. I got diagnosed for diabetes at seven years old. Okay, and it's just, it's been fun, hard and kind of confusing, but,

Scott Benner 2:19
yeah, why don't we figure out what fun, hard and kind of confusing means?

Crew 2:23
So the fun part is, we figured out how to do all of our stuff so far, I think, and it's been fun. I can do the stuff I want to do. I play baseball, one thinking about doing track or football. So that's fun. And the confusing part was, sometimes it's kind of like, I don't really want to do this. It's kind of annoying. I don't really know how so. But other than that, it's been it's been

Scott Benner 2:57
fun. Let's figure out what that means. So how old were you again, when you were diagnosed? I was seven years old. You remember anything about it? I remember

Crew 3:09
I could not feel like any part of my body. I just kind of felt I was there. That's it. And so I couldn't, couldn't really walk, or we had to. We rushed me to, I think, the urgent care, and I think five, three minutes, they said, Yep, yes, type one diabetes that quick. So, yeah, it was fast. It was extremely fast. Three minutes. I'm pretty sure it was the lady came in, smelled my breath, took a look at me and said, Yeah, he has diabetes type one. Your guys are gonna have to take him to children's per seat or right now. Wow. So I

Scott Benner 3:50
want to go back and ask a question. Yeah, you said you couldn't feel your body. Can you be more descriptive about what that means?

Crew 3:57
So what happened was I was like, really? I lost so much weight. I couldn't, like, my legs are kind of numb. My arms are kind of numb. I could barely walk. So my dad was asking to carry me, but I said, No. I mean, I didn't really want him to. So I just, I barely walked to the car, got in the back, just laid down, okay,

Scott Benner 4:19
sat on the back and just, do you know what your blood sugar was when they diagnosed you?

Crew 4:24
I think it was, what was my blood sugar? 485

Scott Benner 4:28
485 okay, yeah, did they say that you were in DKA? Or did you never hear them say that I

Crew 4:35
was in DKA? We went to Children's Mercy Hospital. I was in d k for, I think, 48

Scott Benner 4:42
hours. Wow. So that's how long it took them to kind of bring you back from that. Yep. And how long were you in the hospital? Do you recall?

Crew 4:49
Yes, I was in the hospital for, I think, three days, two days in DKA. And last day I got to actually eat food, and at three. Up because I ate too many oranges and drink orange Gatorade. So that was it. Yeah. And then you're on

Scott Benner 5:07
your way home, and all of a sudden you had diabetes. Now, do you have any brothers or sisters? Nope, only child. Only child. How about your parents? They have diabetes?

Crew 5:16
Nope. None of us. No one in my

Scott Benner 5:19
family. Do you know about other autoimmune issues, like, do you have anything you take medicine for?

Crew 5:23
I have ADHD, so I do take medicine for that.

Scott Benner 5:27
Nothing. With your thyroid, for example, you're able to eat gluten, stuff like that. Yep. Okay, so tell me, how long have you had ADHD? I've

Crew 5:37
had it for a long time, except we just didn't really notice, but I could tell that I've had it for a long time. But we started giving me, um, medicine for medica, yeah, medication for it. I think what, uh, two ish years ago, three issues ago. Yeah,

Scott Benner 5:54
what did you mean? You You could tell you've had it for a long time, like,

Crew 5:58
not focused and stuff in school, when I was in like, second to third grade, first grade, I mean, I don't remember anything about first grade. I remember second third and coming all the way to fourth grade. I was like, could have focused in school, didn't I messed around a lot. And,

Scott Benner 6:15
I mean, yeah, does that not happen anymore?

Crew 6:20
No, ever since I started taking medication for it, it's been really good. I have I've on the principles Honor Roll last year for the whole entire year. Wow, I've had all A's the whole year. It's been a

Scott Benner 6:33
lot better, a lot better. Good for you. And does that make you happy?

Crew 6:38
Yeah, it makes me really happy, because just knowing the fact that it's been working ever since the medication and stuff, it's been working so well. And I'm just happy that I can kind of live my life without having to worry about me just going haywire. Yeah, I

Scott Benner 6:54
get that. So when you get home from that hospital after your diagnosis, there's a way you're taking care of yourself. I imagine your parents were helping you with it, right? A lot. Yeah, okay, yeah. Do you remember how they were doing? It was it with a pump or needles or a pen.

Crew 7:09
It was with pen and needles, and then to take my blood sugar. It was with the poker. We just poked myself, got the blood out, and that was really it, until, I think I was on insulin and the poker for, I think, couple weeks, I think not, not a full month, I don't think, but a couple weeks, and then I went under the My to my pump, yeah, and my Dexcom

Scott Benner 7:37
insulin In the poker sounds like a country music album. Yeah. So you got a Dexcom pretty soon afterwards, yeah, it was, it was pretty soon. Okay, so you've been using it for a long time, yeah, yeah, okay, so let's figure out what you mean by it's fun. So are you telling me that you were presented with a challenge like diabetes, and you find it interesting or engaging to try to figure it out. Yes, okay, are you like that with other things? Yes, a lot. Yeah. Give me an example of something that has nothing to do with diabetes that you find fun just on the idea of you like trying to figure it out.

Crew 8:18
So one thing I like to do a lot is I build speakers. I listen to music and stuff. And so I found this speaker set. It was on Amazon, $13 and so I got one of them. I liked it a lot, and I wired it all together. So I put four speakers and one Bluetooth board, right? And so there was only two spaces to put two speakers in, so I had to cut the wires off, rewire them to the speakers. So I had two speakers on one cord, and I put four speakers and a speaker, so I have a double decker speaker right now. And then I got another one, because I like doing that a lot, yeah. And so I just I figured out how to do it, and so I did it again and put it in my car. So now I have a speaker system in my RC car,

Scott Benner 9:10
in your remote control car, yeah. So when it drives around, it plays Bluetooth music.

Crew 9:15
I can control it all from

Scott Benner 9:17
my phone. Wow.

Crew 9:17
How did you learn to do that? So it was really cool. It did it come with instructions or anything, right? I don't quite understand. I guess I just figured it

Scott Benner 9:27
out. You didn't use a YouTube video or go online. Nope, no, you just looked at it and made sense of it. Yeah, huh? Are you good at math?

Crew 9:35
Yes, I love math. Math is my favorite subject in school.

Scott Benner 9:41
That's nice. That's really awesome. What level of math you in at this point?

Crew 9:44
I was just in regular math, and just I got it done in like, a minute, right? Me and my friend, we were done before anyone in the class. We just got it done. And when we get our math done in school, we get to go on our iPads and, like, go. Listen to music. We get to play, like, educational games. So not just video games, but educational games, like math games and stuff, yeah, or typing games and so I thought that was really easy. It was just so easy the math. I want to do harder math. I want to do pre algebra this year. So I think I'm going to go into pre

Scott Benner 10:19
algebra. Awesome. I hope. What kind of music do you enjoy?

Crew 10:23
I listen to country music. My lesson does some rap music. But other than that, I mean, there's kind of those two things,

Scott Benner 10:31
country and rap. Yeah, tell me a country group that you like.

Crew 10:36
Morgan Wallen. I like Morgan Wallen a lot. George straight. Let's see here, George straight, more than

Scott Benner 10:45
one see George straight, that's got to be your parents music, right? Jelly Roll. Jelly Roll. I like jelly roll too. Let's see here.

Crew 10:54
I There's a really, really old country singer that I like a lot.

Scott Benner 10:57
Do you like rock or guitars or anything like that. Yeah, I do, yeah, yeah. Have you ever heard Gary Clark Jr? Think so. Actually, yes. And what kind of rap Do you like?

Crew 11:08
Some rap I listen to, I Tyler. Tyler the Creator. He's kind he does some rap, but also, I think he's also kind of into pop too. So I listened to Tyler, The Creator. The last song of him I listened to was, see you again. I like, I like that song a lot. Okay, in his playlist, I Gore, awesome. Awesome. That's also the last, I guess, not really song, but that's what I listened to. See you again. On the playlist, I gore. I'll try that out. Okay, yeah, it's, I'm gonna give it a shot. It's fun. It's cool. He's, he's awesome, all right, his music is fun. I'll try.

Scott Benner 11:45
Would you say Morgan Wallen? Morgan Wallen and Tyler the Creator, yeah, I'll give it a shot. Thank you. I need something to listen to in the car today. Yeah, I've been listening to the same stuff over and over again, a little too much, so I gotta branch out. Yeah, you ever do that where you start listening to the same thing? Just way too much?

Crew 12:03
Yes, I just need to find something different. Yeah, I

Scott Benner 12:07
feel like I'm gonna ruin the song sometimes. Yeah, yeah.

Crew 12:10
It's just like, too much. No, give me something else, please. I hear you

Scott Benner 12:14
so you liked music and thought to yourself, I'd like to string together some speakers. Do you go to your parents for that information, or do you just head to Amazon and figure it out? So

Crew 12:25
I went to Amazon and searched up speakers, or I searched speaker systems. And so what popped up was a speaker kit for $13 which is a really good deal, because they it is loud. It is so easy to it was easy to make. All you have to do is just plug it in and then turn it on, and it connects to your phone and it's loud. I mean, it was a good deal for $13 Yeah,

Scott Benner 12:49
it was awesome. I'm looking at some speakers here on my setup, and I paid more than $13 for them. So would have been a good

Crew 12:55
deal for me. Yeah, I don't know. You

Scott Benner 12:58
take that level of interest and do you apply it to your diabetes? Like, why is diabetes fun? Like, I talked to you about the speakers, because, like, I wanted to see like, like, how your mind works, and what you enjoyed about doing that. Are you applying some of that to the diabetes? Yes, how you can manage diabetes confidently with the powerfully simple Dexcom g7 dexcom.com/juicebox the Dexcom g7 is the CGM that my daughter is wearing. The g7 is a simple CGM system that delivers real time glucose numbers to your smartphone or smart watch. The g7 is made for all types of diabetes, type one and type two, but also people experiencing gestational diabetes, the Dexcom g7 can help you spend more time in range, which is proven to lower a 1c The more time you spend in range, the better and healthier you feel. And with the Dexcom clarity app, you can track your glucose trends, and the app will also provide you with a projected a 1c in as little as two weeks. If you're looking for clarity around your diabetes, you're looking for Dexcom, dexcom.com/juicebox when you use my link, you're supporting the podcast dexcom.com/juicebox head over there. Now, I used to hate ordering my daughter's diabetes supplies, I never had a good experience, and it was frustrating. But it hasn't been that way for a while, actually, for about three years now, because that's how long we've been using us. Med, us, med.com/juicebox, or call 888-721-1514, us, med is the number one distributor for FreeStyle Libre systems nationwide. They are the number one specialty distributor for Omnipod, the number one fastest growing tandem distributor nationwide, the number one rated distributor in Dexcom customer satisfaction surveys they have served. Over 1 million people with diabetes since 1996 and they always provide 90 days worth of supplies and fast and free shipping us med carries everything from insulin pumps and diabetes testing supplies to the latest CGM like the libre three and Dexcom g7 they accept Medicare nationwide and over 800 private insurers find out why us med has an A plus rating with a better business bureau at us med.com/juicebox, or just call them at 888-721-1514, get started right now, and you'll be getting your supplies the same way we do.

Crew 15:42
So some of the thing is, like, when I'm dosing, I have to do a little bit of the math to figure out what I have to do, and also figuring out what my blood sugar is. I mean, sometimes, like, my phone dies a lot, and so sometimes I have to poke myself with the original

Scott Benner 16:01
finger poker that I had insulin in the poker. Remember we thought, yeah,

Crew 16:04
sometimes I do have to use those. Why does your phone die a lot? Well, I charge it, it's, I mean, it's an old phone. I have an old phone. So

Scott Benner 16:14
is your mom? Can she hear you saying that? Yes, yeah, act sad. Be like, Oh, I just, I wish my phone was

Crew 16:20
a little, yeah, I wish, mom. I wish my phone just a little nicer

Scott Benner 16:23
phone. Yes, I'd like that iPhone 16. Is that? Are we up to 16 now?

Crew 16:27
I think so. I really, Mom, I really would like the iPhone 16. I mean, is your birthday coming up? Yes, yeah. Wait, no, I just had my birthday a little while ago. I think it was,

Scott Benner 16:38
what'd you get? What'd you get for your birthday? Um, I'll tell you what? Oh, let me tell you something. Crew, if you got a new iPhone, you'd remember,

Crew 16:51
oh yeah, that's that's true, and

Scott Benner 16:54
it is about your health, right? Yes, yeah, it's important that that phone doesn't die. Oh yeah, yeah, that's your argument. That's your argument. That's what you want to do the next time you're talking about it. Okay, okay, I'm worried about my blood sugar, and I really, you know, my phone dies a lot. It's not me. I don't want the phone. I just, I need it. It's a just look cute, and you're an only child, right? Yep, yeah, you must get everything you want. Don't you think?

Crew 17:19
Yeah? I mean, I guess, yeah. Do you wish you had a brother or sister? Yes, I get bored sometimes, and it's kind of like, it's a little bit annoying.

Scott Benner 17:27
But so tell your mom, listen, you can either make a baby or get me an iPhone. Okay? I mean, you see my mind, like, say, Mom, listen, you see what I did with the speakers, right? Like, I'm an intelligent young man. I've got a lot of thoughts. I'm all by myself here. I'm bored. If I can't get a little brother a little sister, I at least need a nice new iPhone that's not gonna die all the time. Yeah, that's how I'm gonna tell her that good job, and don't do it right after this, because she'll know it was like, wait a couple weeks, then drop it in. You know what? I mean? Yeah, yeah. You understand. Okay, so you get bored.

Crew 17:59
Yes, tell me about how so I like to bike a lot, and so, like, sometimes, whenever my friends aren't able to bike around and stuff, I just, I sometimes watch TV if they can. But, like I said, sometimes watching the same old videos, same old music kind of gets a little bit annoying and boring. Yeah. So it's just,

Scott Benner 18:21
yeah, you know, after you and I record this, it'll go off to a man named Rob, and he bikes all the time. Oh, we'll jump on his butt. He'll, like, put his laptop, oh yeah, like with him, and he'll ride somewhere and then edit the podcast when he gets to the place where he's gone. That cool, yeah, that's very cool. That's the kind of job you need. Oh, yeah, I like biking a lot. It's like, it's my thing. How come What is it about riding that makes you enjoy it so much?

Crew 18:49
So I got into biking a couple years ago. I was kind of scared to start get on the bike and everything. So what happened was my dad literally just pushed me on the bike, who is running right behind me, holding me on the bike, and then just let go. I didn't even realize it for a little while, yeah. And I just I started pedaling around, and then I hit a curb, like there was a little the curbs have says, have that little like, jump angle, yeah, in your driveway. I hit one of those and jumped by and jumped my bike. And my dad was like, Oh, my God, oh my God. He was scared. He thought I was gonna crash my bike, but you didn't. Nope, no. Ever since that, I started liking mountain biking, oh,

Scott Benner 19:33
oh, cause you like the riding over things and on the uneven ground. Yeah. No kidding. Hey, listen. Do you want to hear something embarrassing? Sure. Don't worry, Rob, the guy I was just telling you about, like he loves riding a bike, but he still doesn't know how to get started, so his wife has to run next to him and get him going. Oh, isn't that terrible? He's like, 50. Oh, no, yeah, it's embarrassing. You're way ahead of him, really, I guess. But I mean, do you think he's laughing right now when he's editing this? Or do you think. He's like, Hey, don't say that about me. I think he'll laugh. Yeah, do you think I'm being honest, or do you think I'm lying about that? Oh, no, I Oh, interesting career.

Crew 20:09
I like to say you're lying because I because

Scott Benner 20:14
it would be insane for a 50 year old man not to be able to ride a bicycle, right? I guess. Yeah, I don't know, though he's a musician, oh yeah, he plays guitar and all kinds of stuff. He was in a

Crew 20:26
band. He's famous. What band is he in? I don't want to

Scott Benner 20:33
say, oh, oh, my God, I'm sorry I did that, just to mess with him. Maybe we'll say the name of his band, okay, but sorry. Now I'm laughing crew because I'm literally just laughing. I'm just laughing because I'm imagining Rob listening to this, and that's making me laugh. But he's in a metal band called Witch Mountain. Oh, that's cool. Yeah, wow, yeah. No kidding, right? Yeah. What do you want to do when you grow up? I thought

Crew 21:01
about it a little bit, but I don't know if I thought about it enough. I like to be a professional mountain biker for Red Bull, because, I mean, I like it a lot. Yeah, maybe an entrepreneur make my own business Nice. That'd be really cool

Scott Benner 21:14
crew. Wait, let's go back for a second. Like, when you talk about that, like, you know those videos where those guys are, like, riding those bikes on like the ledges of mountains and then jumping. That's what you want to do. Let's talk about the tandem Moby insulin pump from today's sponsor tandem diabetes care. Their newest algorithm control, iq plus technology and the new tandem Moby pump offer you unique opportunities to have better control. It's the only system with auto Bolus that helps with missed meals and preventing hyperglycemia, the only system with a dedicated sleep setting, and the only system with off or on body wear options. Tandemobi gives you more discretion, freedom and options for how to manage your diabetes. This is their best algorithm ever, and they'd like you to check it out at tandem diabetes.com/juicebox when you get to my link, you're going to see integrations with Dexcom sensors and a ton of other information that's going to help you learn about tandems. Tiny pump that's big on control tandem diabetes.com/juicebox the tandem Moby system is available for people ages two and up who want an automated delivery system to help them sleep better, wake up in range and address high blood sugars with auto Bolus,

Crew 22:34
yes. Do you think you could do that? My parents kind of say I'm a little Daredevil, like a daredevil. So I like jumping off of big things. One time I had, I have this um table in my basement. It's one of those tables they pull out the legs and stuff. I put it on the curb, so it was a really big ramp, and I jumped it, and I think I went like four feet in the air, and my mom told me to stop right there. Just, yeah, nope. Don't do that

Scott Benner 23:03
again. I want to tell you that I've watched those videos, and I think those people are patently insane. There's no way that that doesn't end with you dying at some point you understand what

Crew 23:12
I'm saying. Yeah, some people, I mean, if you don't do it correctly, it's really challenging, because you have to get the right angle. Well, yeah, every you had to get everything right, or else, have

Scott Benner 23:23
you heard of gravity? Yes, yeah. Because, you know, they're on a mountain, you know I'm saying yeah, and there's no snow or anything soft, and they don't appear to have a parachute or anything like that.

Crew 23:36
The only thing they have that will that helps with the landing is the suspension. They have the best suspension.

Scott Benner 23:43
Yeah, I don't know about that. That's going to help you grow when you're falling, like, 3040, feet. You know what? I mean? Yeah, that's all. What kind of an entrepreneur would you like to be like? What kind of a business do you think

Crew 23:54
you'd like? I'd like to build speakers, like I said, I think I might make my own speaker, not speaker, but like, my own speaker brand and my own, like something with music, like my own speaker business,

Scott Benner 24:06
I hear what you're saying, like, sell speakers to, like, people who love them too, but don't know how to build them. Yeah, that'd be cool. You know, when I was a young man crew, this a long time ago, the speakers in my bedroom were, I don't want to lie to lie to you, like I'm being I'm being honest, like they were probably four, four feet tall. They were probably like, I'm gonna guess, 18 inches wide, 18 inches deep. They were these big boxes that had all these speakers in them. Yeah, I don't think they sounded as good as the headphones I have right now, which is amazing, because the technology's gotten like, so much better as time's gone. Yeah, yeah. Really cool. Your speakers used to take up a big part of your bedroom.

Crew 24:45
Oh, yeah, not anymore. Yeah. It's crazy. Yeah. Google, old

Scott Benner 24:49
people speakers, when, when you get down, hold on. I'll do it with you real quick. Let's make sure nothing weird is going to come up. Google. I know Google, T, O, O, old people. Speakers. Oh, they don't even go back far enough. Dang, yeah, there's some type in vintage speakers, and you'll see what I'm talking about. Vince is just gonna get you there. That's what, that's what speakers used to look like in our house. And now, what do you do? You all your music comes through your phone, right? Yep, you even have, like, a record player or radio or anything like that.

Crew 25:23
No, my mom has a speaker in her alarm clock. She has an alarm clock speaker.

Scott Benner 25:30
That's an old person thing. Don't do that. Okay, don't. Don't say it to her, because we're trying to keep her in a good mood for the new iPhone. You know what I mean? Oh, oh yeah, yeah.

Crew 25:38
I do want to say really something funny, so she thought it was broken. It's kind of old, it's kind of new, it's kind of in between. She thought it was broken, so she made my dad go and buy a new one, a brand new alarm clock speaker, and he made him go out and buy one. So he bought one. Came home surprised her. One wasn't broken. It was just unplugged, unplugged. Oh how embarrassing it was, just unplugged. So my dad had to go all the way back to Walmart and get find the receipt and get his money back. He didn't make your mom do it. Nope. All because, all because it was just unplugged,

Scott Benner 26:21
unplug. So all right, does she do stuff like this often? How is she with your diabetes?

Crew 26:27
Oh no, she's really good about my diabetes. She's smart. She's like, she does a lot of it. She puts the insulin of the pump and does all that it. She's really fast too. She does it really, really, really quickly. So how about you? Are you good with it? Yeah, I mean, I can manage it. I put my own pump in. Sometimes she'll have me come upstairs and do it and show me how to do it. But I'm like, she does most of it. So which pump are you using? I'm using the new tea, slim, tandem. Moby, oh, how do you like that? It's really good. It's there's one thing I don't like about it. Go ahead, it's the charging time. It's really fast at charging, but it only holds its charge for three days, and that's actually worse than the old pump I had. The old pump I had held a charger for like, four or four and a half days before I had to charge it. So,

Scott Benner 27:26
really complex, tandem. What are you doing, right? Yeah, right. Is that a problem? Having to try it sounds like it might be a problem, but I don't

Crew 27:35
know. Is it? Yeah, like thing I was out on that dinner yesterday where I was somewhere with my dad, I forgot, and my realized my pump was at 5% and so we had to, we were, I think we were at quick trip or something. And so we had to wait for my pump to charge. And then it was, it was annoying. Hey, I

Scott Benner 27:57
just want to say tandem diabetes.com/juicebox. If you want to learn more about the tandem Moby, use my link. I'm not talking to you. I'm talking to the people listening. You know, people are going to be listening to this, right? Oh yeah, yeah, you're right with that. Oh yeah, cool. How many people do you think will listen? I'm not going to tell you, but I just want to hear your guess. I hope a lot. It'll be a lot. Yeah, what do you hope that they hear when they listen to you? Like, what is it you want to pass on to people?

Crew 28:25
So one thing I want to say is you don't have to be scared. Only part you might have to be scared about is just the fact that, I mean going into the hospital and everything. But other than that, once, once it's over with me, it's okay, it's it's good, yeah, as long as you take care of yourself and take care of your blood sugar and your insulin, especially, make sure you dose for your food, because if you don't, you'll go high, and that's not good.

Scott Benner 28:55
Yeah, then what happens? Does it kind of ruin your day? Or how do you think about

Crew 28:59
it? So when I think about going high. I mean, it's just my mom, and she says it's worse than kind of going low for a certain period of time. It's like a sand blaster on the inside of your body. Just imagine that. Yeah, a sand blaster on the inside of your body. You

Scott Benner 29:15
want the level of glucose in your blood to be where it's supposed to be. Yeah, this is interesting. Like, what are you trying to avoid by keeping your blood sugar down? Like, health wise?

Crew 29:24
So I, I haven't had my blood sugar up for a long, long time or, or, like, low for a long time to know, like, how bad it is. So I'm not really sure. I don't, I don't know how bad it is. But, like, whenever I go low. It's weird. It feels like I'm gonna faint. I don't feel tired, just kind of like you get low, like that. It's actually pretty often. It's whenever I get to, like, 70 or 6070. Is not too low. Like I mean, it's low, low, but not. Lot. It's not really low. I can feel it at 70, but when it gets down to like 60 and 50s, which don't happen too, too often, I can feel them way more than 70. But it's, yeah, I don't like it. It's weird.

Scott Benner 30:14
60 and 50, like once a week, once a month. How often,

Crew 30:18
maybe once or twice a week. Does it

Scott Benner 30:22
come around activity, like, when you're playing sports? Whenever I'm

Crew 30:25
playing sports, I do take off my bump and stuff. So I don't, I don't really know what blood sugar is during like baseball, but I have had my blood sugar go down that low one time. I know when I was playing baseball. Yeah, it wasn't fun. Were you out on the field when it happened? Yeah, I was, I was, did you get dizzy out on the field? Yeah, I did not feel good. I I was just, I was waiting for that inning to get over so I could just go and get some, get some sugar.

Scott Benner 30:54
Yeah, did you think about telling somebody, like, Hey, I gotta, like, time out here?

Crew 30:58
No, I mean, I kind of did, but I didn't make, I didn't want to, like, interrupt anything or any, anyone. So

Scott Benner 31:07
it's a hard decision to make, yeah, yeah, especially when you're low, right? It's harder to think about it, yeah, yeah. That only happened one time while you're playing baseball. Yeah? Well, we don't want you to get low twice a week, though. What do you think is happening? Maybe we could figure it out and stop it from happening.

Crew 31:21
I'm not really sure. I mean, it's sometimes when I overdose for something, or sometimes it's just because the heat outside and stuff, and yeah, me. I mean, riding my bike, especially riding my bike, it goes low a lot, especially on the heat in the summer. Yeah. So is it

Scott Benner 31:38
hard to plan ahead for activity like, you know, to put, put yourself in activity mode, or maybe take away a little just sit talk to your mom about making adjustments. Yeah,

Crew 31:48
I try that sometimes, and just sometimes it kind of doesn't

Scott Benner 31:51
even work. Yeah? So, like, pre bolusing, it's hard to remember to do, right? I pre bullish sometimes something you do, yeah, well, all that stuff that you told people not to be scared about, like, is that something you figured out by yourself? Or did your parents tell you not to be scared and you believe them and you're

Crew 32:07
not scared? Kind of figured out myself. My parents told me that it was going to be okay and stuff. But, I mean, they didn't really say not to be scared or anything. But after I just got used to it, it just kind of came to my sense that everything's fine. I just have to take care of myself and it'll be

Scott Benner 32:24
okay. So after you live with diabetes for a while, you came to the conclusion that as long as you do the things you're supposed to do, it works out pretty well. Yep, no kidding. You just came to that conclusion on your own. Yes. Nice. Yep. Do you have friends who know about your diabetes? A lot of people, yes. Like, did they try to help you with it? Do you guys not talk talk about a lot, not talk about it much. Like, how does it, um, intertwine, I guess, in your relationships?

Crew 32:53
So my friend, who he said, I didn't talk about him. So my friend, his name's Emmett. He's very nice kid. He's very smart. Yeah, he helps me out with it. Sometimes, whenever he hears my beeper, he'll say, are you okay? You need? Do you need any sugar or anything? We were out biking one time he heard my beeper go off, and I did not hear it, and he said, Your beeper is going off. Are you okay? I have snacks in my bag. Do you need any snacks? So I checked my blood sugar, and I was, I was high. So I said, I don't, I don't eat any sugar. I just need to give myself some insulin. So he's, he's really nice. He's, he's a cool kid. How long have you known emit or I've known Emmett ever since second grade. No kidding, you guys, good friends. Yes, we, we bike all the time, all the time. Where do

Scott Benner 33:40
you go through the woods? Or like town, how do you where do you go? Not

Crew 33:44
really in the woods. I mean, necessarily, we go to the park a lot. We ride around the park. There's a little skateboard place. We I jump my bike on the skateboard place on the big ramps over there. So we bike around there a lot. Sometimes we go to the grocery store. Sometimes you go to his house and bike around his neighborhood. Yeah, sometimes you pick around my neighborhood, yeah. Does his phone ever die? No, sometimes he says it's low, but

Scott Benner 34:13
never dies like yours does. No, is yours dying because of your diabetes supplies that you're running off it or because you're listening to music all the time. Do you think I don't

Crew 34:22
really listen to too much the music? Yeah, I listen to music whenever I'm, like, biking and stuff. But other than that, I don't think it's because of the music.

Scott Benner 34:30
I just don't hold her phone, and you've got a lot of, like, Bluetooth stuff hooked up. Yeah,

Crew 34:34
yeah, I do have a lot of Bluetooth stuff, like, I do have the speakers, but I also have my pump, my Dexcom, I have a lot of stuff, so I think it might be because of my diabetes, like, all the stuff doing that, yeah, because I'm, I'm on my diabetes stuff a lot, like, a lot, a lot,

Scott Benner 34:54
right, right? When you're on a lot, is it because you're nervous or just you're trying to do a good job? Do you think you look at it too much? What's your level of involvement with it during the day, and how does it affect you?

Crew 35:03
I think I look at it because I want to keep my blood sugar where it is supposed to be. Sometimes it's because I'm a little bit nervous, like when I'm biking. I check it a lot because I don't want to accidentally go low, yeah, and not realize it. So do you

Scott Benner 35:19
know what to do if you get too low? What is your plan if you get too low?

Crew 35:23
If I get too low, I will just immediately stop biking and tow emit that. We need to take a break right now, and I will get some sugar. And if it does not come up, I haven't really, I haven't actually got crazy low yet, biking like, not low enough to use. My there's a spray thing that you spray in your nose if you go too low. It like, saves your life.

Scott Benner 35:48
It's called back. Semi, right, yeah, yeah. Have you ever heard people call it back? Squeamy, yeah, my parents call it that. Yeah. I think it's back. Semi, yeah. You know, they're old. They don't know how old are your parents, by the way, she's over there right now. It's hard to say her age out loud. But do you know how old she is? Oh yeah, she like, really old, kinda, yeah, kind of really old. How old? Like, in her 40s, more than that. Oh, my God. 50s, a little bit more than that. 60s, Yeah, no kidding. Are you adopted? Nope, no. How long have they been married? Just pretend she's not there. Look away. How long have they been married? You don't know.

Crew 36:28
I think about 1520, years. Really

Scott Benner 36:33
interesting. What kind of work does your mom do? Does she you don't have to say where she works. But like, does she do a thing? Yeah, she works still, what kind of work? Not really sure. I don't know. I hear you. I don't think my kids know what I do either. Yeah, how about your dad? Do you know what he does? He's retired. Nice, wow. Your parents are in there. You're 13. Your parents are in your 60s. That's cool. Yeah, so are your friends parents all like much younger than your parents, yeah, how is that? Is that? Is that any sort of way, or does it not bother you or not come up?

Crew 37:07
It doesn't bother me. It doesn't bother their parents at all. It doesn't no

Scott Benner 37:12
big deal. Yeah, no kidding, wow. Well, that's interesting. You might have to interview your mom in a minute when we're done. I might have to talk to her, ask her say when, when I'm done recording. Would you talk to Scott for five minutes?

Crew 37:24
Mom, when I'm done recording, do you want to talk to him for five minutes?

Scott Benner 37:27
He she said, Sure, cool. Tell her. I got questions. He got some questions. Okay, she's okay with that. Yep, awesome. Okay, we'll keep talking now. Okay, all right. So have you seen any movies this summer?

Crew 37:41
Yes, I've seen a couple. You see Superman? No, I did want to, though, but kind of sad I missed, missed it. Do

Scott Benner 37:49
you see Fantastic Four?

Crew 37:52
No, what did you see? I know I saw the new fashion, furious, um, I think it was like up early, early summer, when I started, I think I went to the movies. I did. I did see the Minecraft movie. I didn't watch it at the movies, but I watched it on YouTube, actually. And I watched Happy Gilmore too,

Scott Benner 38:14
and that's what the ones I watched. Yeah, listen, you definitely play Minecraft, right? No, no with your math mind, have you ever tried it?

Crew 38:22
Oh yeah, I used to play it a lot. I mean, okay, like, a lot, a lot. Just don't play enough, yeah, yeah, outgrew it, yeah, I think so. Just Yeah. What'd you think of the movie? The movie was pretty fun. I mean, it was, it was cool, yeah, it was funny, definitely funny. Nice. I wonder if you would like Superman. Oh yeah, I like Superman. I watched a lot, a lot of

Scott Benner 38:46
Superman. Yeah, actually. So interestingly, isn't Superman from Kansas? I think so, I believe so. Yeah, maybe you'll recognize some of the stuff that they some of the places they're at in the movie. Who knows that'd be crazy if you did? Oh, yeah, you grew up in Kansas. That's where you were born. Yes, yes, I was when you think about going to college? Do you think about leaving home and going to college, or do you think about staying local?

Crew 39:12
Staying kind of local? I might. I haven't thought about a lot yet. Yeah, yeah. We live in Lawrence. So the main College in Lawrence is obviously KU, so I don't really know when I go there, or my parents are K State fans, so it's kind of KU, K State we

Scott Benner 39:35
don't KU, that's the Jayhawks, right? Yeah, yeah. You like basketball.

Crew 39:39
I watch basketball. You watch some of it, yeah. What's your favorite

Scott Benner 39:43
sport to watch? My favorite Oh Baseball. Baseball is your favorite sport to watch? Yes. Bobby Witt Jr, you love

Crew 39:50
him. Oh yeah. Bobby Witt Jr, although he's not my favorite

Scott Benner 39:54
baseball player, he's not your favorite royal or not your favorite baseball player. Actually,

Crew 39:58
no, he's not my favorite Royal. Naturally, who is my favorite royal he's the catcher. I have his baseball card, actually, yeah, Salvador

Scott Benner 40:07
pres Oh, no kidding, yeah, he's old, huh? Yeah, he's been around for a

Crew 40:11
long time. Yeah, Emmy, he's old, but he's still doing

Scott Benner 40:17
it. So I'm kidding. Did you see that? Mason? I don't know how much you follow baseball. Mason Miller was traded from the A's. No, I did not. He's a reliever. He has type one, huh? Did you know that? No, where'd he go? All right, hold on, a second crew. Let me figure out. Let me figure out where he went. He was with the A's. He escaped the A's. Oh, he went through the Padres. Oh, yeah, I'd like him to be on the podcast, but he does not answer my DMs. If anyone knows him, I would like to get a message to him, but yeah, he has type one. He throws, like, like, 100 miles an hour. He's a closer. Geez. Yeah, right. Anyway, he's got type one. Who else has type one? There's another pitcher, you know, any, any type one ball players? I don't think so. Actually, no, there's um, guy used to pitch for the Cardinals has type one. Can't think of his name. I've had Brandon Morrow on the podcast. He's got type one. Adam Duvall has type one. I think Jordan Hicks is the guy's name? Is it Jordan Hicks? Yeah, I am right. Haha, I'm sorry, just, I'm just happy to be right. He's maybe with the Giants at this point. Anyway, there's a couple of play so baseball is your favorite sport to watch and to play, yes, what position

Crew 41:42
do you play? I play second base, right field. Let's see pitcher. I am a pitcher. I'm starting to do pitching. I went to a pitching clinic on Saturday, and they were they were surprised, because I haven't pitched a lot, and so my fastest pitch was 57 and that was on a day that I wasn't ready. We were actually in Branson. Okay, so, but how fast were you throwing? We went to this place in Branson called wonder works, and they had a simulator where you could pick which sport you did. So I picked baseball. Obviously, I pitched 57 and that was when my arm was sore and I was I wasn't ready. It was just a little thing. So I picked, I pitched 57 that day. That's

Scott Benner 42:34
pretty great, man for your age. Yeah, really great. Do you think you'll do more of it?

Crew 42:38
Yes, I do. I really want to pitch for my team. Nice. How tall are you? Almost five foot. I'm 411

Scott Benner 42:46
I think getting there, you starting to grow about now, yes, yeah, a little bit. Are your parents taller or shorter? They're

Crew 42:53
not really short, and they're not really tall. I guess they're, they're

Scott Benner 42:57
in the middle, yeah, gotcha. That's all right. I think pitching is great. Just be careful with your arm, you know, make sure you warm up first. You know about using the bands to warm up your arm? Yeah, yes, good. Oh, man, they're teaching you guys that. Yep, awesome. I

Crew 43:13
actually learned some pitches from a kid who is 13 but plays for 14 team. So he's a really high level baseball player. And so he showed me a two seam, not a fastball, but a two seam slider, and he showed me a curve ball. And so I've mastered the two seam slider and curve ball, and my trustiest pitch I have in my arsenal is my change up, nice.

Scott Benner 43:45
So are you right handed or left handed?

Crew 43:49
I'm right handed in almost everything. Okay,

Scott Benner 43:52
does that two seam? Does that run to the right?

Crew 43:55
It kind of does. So whenever I put spin on it, kind of, it goes down a little bit, and then it kind of goes to the right Somewhat, yeah, it goes to the left or to the right, depending on how you put spin on the ball and how you throw so

Scott Benner 44:12
nice, like, I, I'm excited for you. My son played baseball since he was four years old, all the way through college, dang, yeah. It was a lot of fun. He's older now. He's 25 so he doesn't play anymore, yeah, but yeah, he played all through college. By the time he was done College, his fastball, he played center field and he pitched, and his fastball was up to 93 by the time he graduated. Geez. Crazy that could happen to you. Your body could get bigger and stronger, and you could be like, doing all kinds of crazy stuff. I hope, yeah, that'll be fun. I love that. You love baseball. That's really cool. Anyway, Bobby got a triple yesterday. He was or two days ago. I think he's flying around the bases. He is really fast. Oh yeah,

Crew 44:53
actually, speaking of flying around the bases, my favorite baseball player is led la cruz. And he is the best base stealer in the world right now. I'm pretty sure he the pirate Ellie de la Cruz. I think plays for Cardinals. Cardinals,

Scott Benner 45:08
really, what am I thinking of on the pirates? Then let's see. Hold on, Scott,

Crew 45:14
there's a couple baseball players with the last name Cruz. So, yeah,

Scott Benner 45:19
oh, de la Cruz, red, Cincinnati. Yep, nice. Why did I think he was the pirates? Who's with the pirates that I'm thinking of? There's so many people. My son, like, knows them all. When we talk about it, I'm always like, I don't know what you're saying. I can't remember everybody, but he's got that kind of head. He could play in a baseball game and then sit down afterwards and talk through every pitch of like, four of his at bats. Yeah, he'll be, like, on my first at bat, like, he started me with this, and then the second pitch was this, I fouled it off. The third pitch was this, it missed outside. I'm, like, always stunned by that. Like he re, he can remember all of them, or he'll talk about a guy he threw, like, you know, he's like, in the sixth inning, I pitched to this guy, and he will, he can walk you through all the pitches. It's really an interesting way his brain works, but nevertheless, I don't have that ability. Is what I'm saying. Like, he tells me about it, and I'm just like, okay, yeah, all right, I don't remember, but yeah, do you have anything in common with your parents? Like you said you like math. Is that something your parents like have in common with you?

Crew 46:17
My mom is really good at math, so I'm gonna ask that my dad is also really good at it. I mean, he doesn't like it, but he's good at he's good at it, yeah, my mom likes it. She's good at it. I like it. I'm good at it. So Kinda, yeah.

Scott Benner 46:33
So now I know you're too young for this like, to really have an answer, but you're 13, so college is five years away, which is a long time, right? But at the same time, it's not that long of a time. And I'm wondering, if you've thought about not being home with diabetes, like, what is it you're gonna have to figure out over the next five years to be comfortable going away to college.

Crew 46:55
I'm comfortable with it now, I will have to learn how to put all my insulin and everything in my pump, and I do all of my Dexcom stuff. So I put on my Dexcom. Sometimes I put the little patch on it, so I do all the stuff for my Dexcom for my pump. So I will have to learn that.

Scott Benner 47:15
So yeah, do you think that'll be any

Crew 47:19
trouble to learn? I don't think so. Um, it's way easier, way easier with the new Moby. Yeah. So it should be, I hope it should be good. Do you

Scott Benner 47:29
think your mom's waiting for you to ask about like, Hey, can I learn more about this? Where do you think she's like, happy for you not to have to worry about it right now? I think she's waiting. Yeah? What will make you go to her and say, Hey, I'd like to know more about this.

Crew 47:45
I'd like to so I think I might ask whenever I change my pump out.

Scott Benner 47:50
So yeah, to learn a little more about it. Yeah, yeah. You're not trying to avoid it, right? Oh, no, no, no, but it is nice that somebody helps you. Or no,

Crew 47:59
no, it is. It is nice, yeah, sometimes, but whenever I'm playing my video game, she'll just ask me to give me my phone and my pump. Just take it off real quick. I don't have to wait a wait or anything. She'll just do it, and then she'll come back and I'll put it on. I can go back to play my video game. So it's, it's nice, yeah, it's really nice. Nice

Scott Benner 48:17
to have a little help. That's very cool. I think your mom's gonna probably help you for a while, which you know, especially even when you get to college, like you're gonna need some assistance sometimes, you know what I mean, yeah, yeah. It's gonna be a thing that I think you'll probably like, slowly get more and more control of for yourself. But it's nice to know that somebody's got your back. Yeah, it is. Who is more involved with your diabetes, your mom or your dad, or is it equal? My mom,

Crew 48:43
she does all the stuff. She's the smart one in the house. I guess she's the

Scott Benner 48:49
smart one. Yes. No, she did not know her clock was unplugged. Her clock speaker was unplugged. It is you remember that when she needed a new

Crew 48:57
speaker? Yeah? Oh yeah, that's one thing

Scott Benner 49:01
that's okay, cool. What kind of a branch on that one? Yeah. What kind of food do you like

Crew 49:05
to eat? Let's see, I like to eat vegetables. I eat a lot of carrots and hummus. Okay, I do like to eat peppers. So I eat a lot of banana peppers. Might think that's kind of weird, but I eat banana peppers with my fried chicken, so

Scott Benner 49:21
that's not weird. You think it's weird?

Crew 49:25
I mean, I think some people might think it's weird, but, I mean, I like eating my banana peppers with fried chicken. I mean, I

Scott Benner 49:33
think that's okay. So does your mom make the fried chicken? Or do you guys get it

Crew 49:36
somewhere? We get it at Dylan's. They have the best fried chicken. The best

Scott Benner 49:41
Dylan's is the best fried chicken. Yes. So if I get, if I ever come to KU I should go to Dylan's. Yes, okay, I thought one time I was going to speak there, and then it didn't work out. I forget. Why do you listen to the podcast ever? No, just your mom does, right? Yeah. Yeah. Yeah. Did she come to you and ask you if you want to do this, or was it a thing you asked about

Crew 50:04
I asked about it. I asked, Has there been any kids on the podcast? So I asked if I could. So she asked you, and yeah,

Scott Benner 50:13
and you got to tell people that you don't think they should be afraid. Nope, that's good. They should be what else do you want them to know?

Crew 50:21
Anything else I would like them to know that, if anything like, if you do, go really, really low, I would say, be calm, be relaxed. Because if you, if you like, get really, really scared. I know sometimes, one time I was riding my bike and I was low and it crashed. And both of those combined the low and the fact that I crashed. I got the sprocket from my bike, went into my calf and cut holes out about maybe a little a half an inch deep. So I probably should have got stitches, but I did not get stitches. We cleaned it out and everything that was not fun. Adrenaline. I did not know what to think about at all. So if something does happen that's really, really bad, like going low, I'd say, if you're calm and relaxed, just be calm. Just try to be sugar. If it's really, really bad, use your back spoony. So

Scott Benner 51:20
yeah, something I want to say, well, that's awesome. I will say that you just gave me the chills when you talked about the sprocket, like, putting holes in your legs that. Yeah, how long ago was that?

Crew 51:29
Oh, um, it's all killed. I don't you. I can't really even see it. I don't know exactly where it's at. I think it was about maybe a year. No, it was two years ago. It was about two ish, okay, wow. Actually, I just had, I had a recent crash in Arkansas. I was riding mountain bikes again in Arkansas, and so my bike wasn't biking. I was going about 20 on a turn. The brakes weren't breaking, and so I tried to brake. And it was rainy that day, I tried to turn my bike. It was not turning at all, so I kind of break. Did not do nothing. I skidded, went into a tree, almost broke the tree in half, took all the bark off the tree, tangled up in my bike and the tree, and so I had a big gash, like it's it's scarred up so I could see it, it's in the middle of my calf on my other leg that I got, not the leg that I had the other incident on. Yeah, so this is a different leg, and it's about an inch long, and I think it was about also half an inch deep, so it was bleeding bad. This guy, luckily, there is a doctor who is writing saw us and saw me in the tree, and so he came over and gave us a med kit. And so we put all the stuff on my leg and everything. And so that was not fun, but also fun, because I got back up and started writing again. Wow,

Scott Benner 52:59
you are Daredevil, huh? I really appreciate you taking the time to talk to me like this. This was awesome. Thank you.

Crew 53:05
Well, thank you. Thank you for letting me come on the show. No,

Scott Benner 53:08
it's my pleasure. It really was. You were terrific. Your mom said you would be, and she was 100% right. I want to wish you a ton of luck. It sounds like you're doing great. I think you should just keep doing what you're doing with your diabetes. Keep learning and keeping that attitude you have, you're gonna, you're gonna do really well.

Crew 53:22
Thank you. You're welcome. So, yeah, man,

Scott Benner 53:25
I don't see any reason why to think you wouldn't like, you know what I mean, like you, yeah, yeah. You're thinking about it, right? You're learning as you go, you have a great attitude, and you're working on it, and you're happy to push through the tough times. I don't want to see you get low as much. I think you guys should work on that, you know, trying not to get so low well during activities. But other than that, man, like you're you really are doing a great job. I hope you're proud of yourself. I am. Thank you so much. You're welcome. Thank you. Let me talk to your mom before you go. Okay. Okay. What's her name? Marcia. Okay. Thank you. Good morning. Hey, Marsha. He was awesome. Oh, good. Yeah, it's hard to tell when it's a one sided conversation, right? Yeah, he,

Marsha 54:04
well, he was a little nervous. I could tell that he was much better towards the end. I could tell

Scott Benner 54:09
yeah, that's, by the way, that's everybody, not just, yeah, not just 13 year olds. Everybody starts out nervous. So I just have to ask you, how old are you? How old am I? Yeah, I'm 60, and He's your only kid. Yes, was he right that you got married about 15 years ago, 17? Oh, he was pretty close. Okay, yeah, yeah, I just popped you on to ask you, like, is it a second marriage, a late in life baby? Like, how did so,

Marsha 54:36
it's really a long story, but yes, I am my husband's fourth wife, and he is my first husband. Wow. And crew does have a brother. He calls him an uncle, but it's a brother. And Adam is like

Scott Benner 54:49
47 No, this is the half brother, obviously, yeah, yeah, yeah, yeah, wow, yeah, yeah. Now I want to I have so many questions. How will. Your husband? He is 70. Did he outlive some of those ladies, or did they not care for him anymore?

Marsha 55:08
Well, like it's funny. I I laugh. I said I met him after his first wife, dated him after his second wife, and married him after his third wife. So I've known him for a long time, and we just kind of kept reconnecting. And so yeah,

Scott Benner 55:23
and you weren't married through that time at all. No, did you ever think you were gonna have a kid? No,

Marsha 55:27
no. Well, because, like, by the time we got married, I was like 40 some

Scott Benner 55:31
Yeah. So yeah, was crew not on purpose? He was on purpose. Okay, yeah. Are we winking at each other? What's going on right

Marsha 55:41
now? No, okay, wow, that's

Scott Benner 55:43
awesome. It sounds like you have your own little story that I would really enjoy hearing.

Marsha 55:46
Yes, yes. It's it's an interesting it's an interesting one, that's for sure. It's a story.

Scott Benner 55:51
I bet you it is all in Kansas. These, these, yeah, really,

Marsha 55:55
yeah, yeah. I met him in his hometown. I was there on a conference and went out with some friends and ended up like dancing with him. And then he showed up at the hotel the next day, said, Hey. So we dated a little while, that was after his first wife, and then he could, kind of always kept track of me and hunted me down. That's gonna say he's not shy. I know that. Oh no, he is not. He is not. And his son takes after him, like when crew was like, I remember this vividly. We went to the swimming pool, and crew was probably, like, two years old, and this man holding another little girl comes up and he goes, Hi, I'm coo white, what's your name to this guy? And the guy tells him, and he's like, and what's her name, pointing to the daughter. So Cruz, kind of a lazy ladies man like his dad is.

Scott Benner 56:45
He also doesn't seem to have any fear of dying, as far as I can tell. No, yeah, no. He's like, I'm like, What do you wanna do for a living? He's like, I'd like to be one of those Red Bull mountain bikers. I was like, I don't think that's safe.

Marsha 56:58
It's not. He's really good on a bike. He is very good on a bike. And we've gone down to Bentonville, Arkansas a couple of times and rode mountain bikes through there. And so, yes, a 70 year old man and 60 year old woman trying to keep up with a 13 year old on mountain bikes. Picture that

Scott Benner 57:13
I've been picturing it since because, like, I just, I was teasing him a little bit. I was like, because your mom old? And he's like, Well, and I'm like, What's she like, 40? He goes no, and I'm like, 50, and she goes No. And I'm like, 60, goes Yeah. And I was like, Oh, I also told him that he needs a new iPhone and that he should work you for it, so that should be coming soon, just so

Marsha 57:35
that's been going on for a month now, and every time it's brought up because his cameras doesn't work on it, and so when he tries when he tries to take a picture of his Dexcom and go see I need a new phone, he

Scott Benner 57:45
told me, he's like, the battery dies too quickly. And I said, tell your mom, this is a matter of health. It's got nothing to do with your enjoyment. And then he's like, and I said, Do you ever get bored being an only child? And he said, Yeah. And I said, Do you think you're going to get a brother or sister? I think this was before I realized you were 60, sorry? And he's like, No, I don't think so. And I was like, well, then you need a phone for that. And I was like, I was like, he had to tell your mom that. Be like, Listen, I'm I'm very bored, and I just, I need any if you're not going to make me a brother or sister, I need a better phone. I'm interested to see how he comes back to you with it, if he, like, actually follows through and does that or not? Oh,

Marsha 58:21
he's tried with a brother and sister angle too. I need one, Mom, let's just go get

Scott Benner 58:25
one. Yeah, you tell him, Listen, you're gonna be raising that kid if I make another baby, so just be careful.

Marsha 58:32
No, I know that's not that's no joke. No joke.

Scott Benner 58:35
Mommy can't pick the baby up when you're 20, you're gonna be, you're gonna be on the hook. I just want you to know, yeah, that's really sad. That's for sure, you have an interesting life, yeah. How did you find the podcast? Actually, I

Marsha 58:49
have been on your podcast. Oh, what are we like? Episode 1194,

Scott Benner 58:55
I think maybe. Okay, all right, just before that, like, just, how did

Marsha 58:59
I find it? Yeah, we were at a pumpkin patch shortly after he was diagnosed, and he went low. And I gave him a bunch of stuff, like, three different times, and he kept going lower and lower. And we were newly diagnosed. I mean, like, he, he got diagnosed in February, and so, like, this was October, right? And it's the first time I'd ever been out in public with him going so dramatically low. So I pumped him full of everything, glucose tabs, Skittles, another pack of Skittles, a caramel apple, and then he shot high. And I'm like on we just kept listening to him buzz, and it was before I knew anything about being bold with insulin or any of that kind of stuff. So he was sitting at like 250 or something, and we were waiting on this little train, and this he went off, and this woman whips her head around and says, Dexcom. And I said, Yeah. And she goes, there's mine. It was the first time we met someone out in public. And she goes, You should listen to the Juicebox podcast. And so then I started listening. I i. I go to the gym every morning, like around five, and so I get on the exercise bike and put on the podcast, and started listening from there, which has been amazingly helpful. I'm glad when he says, my mom's the smartest about diabetes, that is I am, because I listen to the Juicebox. And so we do a lot of his management that way, and he's maintained low six a one sees his whole diagnosis.

Scott Benner 1:00:26
It's awesome. He told me he gets low a little bit while he's, like, active,

Marsha 1:00:30
if it's hot outside and he is active 100% guaranteed. Yeah. So when he rides his bike, he has to make sure that he has things with him. And then sometimes, when he's playing baseball, if it's hot out, we pass a lot of skittles through the fence, or Gatorade or, you know, whatever, whatever it takes to get him.

Scott Benner 1:00:50
Has he tried eating a little something that's really tough to digest, like, you know, like a kind bar or something like that, little something that sits in your stomach a little longer to hold him up during those activities.

Marsha 1:01:00
You know it's really interesting, because there are times, most of the time, he doesn't have any problem. If he goes in pretty stable to whatever activity, he'll stay stable throughout it. But if he's eaten beforehand and has some insulin on board for whatever he's eaten, it kind of seems to exacerbate that, yep,

Scott Benner 1:01:19
for sure, active insulin during activities is a quicker way to being low. Well, yeah, it sounds like you guys are doing really, really well. And I'm happy for

Marsha 1:01:29
we've just kind of taken the attitude, like, you have this and you'll have it the rest of your life. And so we catch people out in the wild, and we're like, they've got a Dexcom. Let's go talk to them or, you know, so we've done a lot of that we've never made it so it's something to be embarrassed about, or something, you know,

Scott Benner 1:01:44
he seems very clear minded about the whole thing, yeah, yeah, he is. He really great kid. Yeah, he definitely seems. And it makes sense too that you guys are older too, because I think my kids would be better if I was older when I raised them. Yeah, not that they're bad kids, but like I would have given I'm sure I should clarify that. I think that I would have had a different perspective. And I imagine you do too raising some like, because, yeah, what were you 40, like, seven when you had him? Yeah? Wow, yeah, you were probably thrilled when he came out and he had, like, his fingers in

Marsha 1:02:17
his toes, yeah, yeah. He's been good for us. Everybody's like, Oh, he's gonna keep you young. And we're like, Hell, no, he keeps us

Scott Benner 1:02:23
tired. No, I don't see that sounds like something a person would say, who doesn't know? No, that's really something, all right. I don't want to take up your time. This was really wonderful. Tell him again that I said, Thank you, and I'm sorry if you have to end up buying him an iPhone. That's

Marsha 1:02:36
my fault. Oh, I'm sure it's gonna happen before school starts.

Scott Benner 1:02:39
Yeah. Oh, what a lovely back to school idea. Yeah. Oh yeah, thanks, yeah. Just go out there and put it. I don't even know what they cost anymore. They're insanely expensive. Oh yeah,

Marsha 1:02:49
they're crazy. But he's had it. I mean, his schools, interestingly enough, took away all their cell phones last year. And I'm like, on dude, here's one perk. You get to have yours all day long. Yeah, yeah. But yeah, Mama has the share time plan, and so I locked down his phone. So yeah, he's,

Scott Benner 1:03:05
I tell you what, he didn't say one like every kid I've ever interviewed will be snarky a little bit about their parents. He was never once about you guys. That's because He loves us. Well, I hope so, but it's not because he's scared out of his mind, right? You don't have him scared to death. No, no, no, I'm just kidding. He didn't. He just, he, really, he's, he was lovely. I really appreciate you putting him on with me. Thank you so

Marsha 1:03:28
much. Yeah, well, thank you for doing it. He was kind of excited about it so

Scott Benner 1:03:32
well, I can't wait for him, him and Emmett to be able to listen to it. Okay, all right, great. Thanks so much. Hold on one second for me. Okay, I had so much fun. Oh, that's cool, man. I'm glad

the conversation you just enjoyed was brought to you by us, med, us, med.com/juicebox, or call 888-721-1514, get started today and get your supplies from us. Med, today's episode of The Juicebox podcast is sponsored by the Dexcom g7 and the Dexcom g7 warms up in just 30 minutes. Check it out now at dexcom.com/juicebox the podcast you just enjoyed was sponsored by tandem diabetes care. Learn more about tandems, newest automated insulin delivery system, tandem Moby, with control iq plus technology at tandem diabetes.com/juicebox. There are links in the show notes and links at Juicebox podcast.com. Okay, well, here we are at the end of the episode. You're still with me. Thank you. I really do appreciate that. What else could you do for me? Why don't you tell a friend about the show or leave a five star review? Maybe you could make sure you're following or subscribe in your podcast app, go to YouTube and follow me, or Instagram, Tiktok. Oh gosh, here's one. Make sure you're following the podcast in the. Private Facebook group as well as the public Facebook page you don't want to miss. Please. Do you not know about the private group? You have to join the private group as of this recording, it has 51,000 members in it. They're active, talking about diabetes, whatever you need to know. There's a conversation happening in there right now, and I'm there all the time tag me. I'll say hi. If you're looking to meet other people living with type one diabetes, head over to Juicebox podcast.com/juice, cruise, because next June, that's right, 2026, June, 21 the second juice Cruise is happening on the celebrity beyond cruise ship, it's a seven night trip, going to the Caribbean. We're going to be visiting Miami, Coco K, st, Thomas and St Kitts, yeah, the Virgin Islands. You're gonna love the Virgin Islands. Sail with Scott the Juicebox community on a week long voyage built for people and families living with type one diabetes. Enjoy tropical luxury, practical education and judgment, free atmosphere, perfect day at Coco Bay St, Kitts st, Thomas, five interactive workshops with me and surprise guests on type one, hacks and tech, mental health, mindfulness, nutrition, exercise, personal growth and professional development, support groups and wellness discussions tailored for life with type one and celebrities, world class amenities, dining and entertainment. This is open from every age you know, newborn to 99 I don't care how old you are. Come out. Check us out. You can view state rooms and prices at Juicebox podcast.com/juice cruise. The last juice cruise just happened a couple weeks ago. 100 of you came. It was awesome. We're looking to make it even bigger this year, I hope you can check it out. The episode you just heard was professionally edited by wrong way recording, wrong wayrecording.com. You.

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#1617 Fifty Countries with Diabetes

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio -  Radio Public, Amazon Alexa or wherever they get audio.

Sarah, an anesthesiologist and mom of four, shares her family’s adventures traveling the world while managing her 9-year-old son’s type 1 diabetes.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Welcome back friends to another episode of The Juicebox podcast.

Speaker 1 0:15
Hi. My name is Sarah. I am a physician and a mother of a son who was diagnosed with diabetes about three years ago now, which was six weeks before we started a six month trip around the world.

Scott Benner 0:28
I am here to tell you about juice cruise 2026 we will be departing from Miami on June 21 2026 for a seven night trip, going to the Caribbean. That's right, we're going to leave Miami and then stop at Coco k in the Bahamas. After that, it's on to St Kitts, St Thomas and a beautiful cruise through the Virgin Islands. The first juice Cruise was awesome. The second one is going to be bigger, better and bolder. This is your opportunity to relax while making lifelong friends who have type one diabetes. Expand your community and your knowledge on juice cruise 2026 learn more right now at Juicebox podcast.com/juice. Cruise. At that link, you'll also find photographs from the first cruise. Please don't forget that nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. This episode of The Juicebox podcast is sponsored by Omnipod five. Omnipod five is a tube, free, automated insulin delivery system that's been shown to significantly improve a 1c and time and range for people with type one diabetes when they've switched from daily injections, learn more and get started today at omnipod.com/juicebox at my link, you can get a free starter kit right now. Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox the show you're about to listen to is sponsored by the ever since 365 the ever since 365 has exceptional accuracy over one year and is the most accurate CGM in the low range that you can get ever since cgm.com/juicebox the episode You're listening to is sponsored by us. Med, us. Med.com/juicebox, or call 888-721-1514, you can get your diabetes testing supplies the same way we do from us. Med,

Speaker 1 2:33
Hi, my name is Sarah. I am a physician and a mother of a son who was diagnosed with diabetes about three years ago now, which was six weeks before we started a six month trip around the world. Oh, we're gonna talk about traveling today with type one. Yes, we have done a lot of travel, so we have been to 50 countries in the last three years or so. As a family, we have four kids, and it's been a wonderful experience for us, and we've learned a lot about how to travel with diabetes in that time, as you might imagine, yeah, what kind of physician are you? I'm an anesthesiologist, so far afield from the diabetic world in general, but it does help me feel more comfortable about emergencies and navigating medical systems in different kind of kinds of locations.

Scott Benner 3:16
Cool. How do you find yourself traveling so much? Well, when I was growing up,

Speaker 1 3:20
we I didn't travel at all, and then gradually started as I as I got older, my husband and I actually met when we were climbing up to Everest base camp in Nepal. And with I was by myself, and he was with a few friends. And so we've always loved to travel and love to travel together. And once the pandemic restrictions were lifted, we wanted to share that with our children, so I was able to negotiate some time off of work, and then we basically created a plan to go around the world. That first trip, we went to Spain for about three months and put our kids in a local Spanish Montes school. They didn't speak Spanish prior to that, and now they are conversational. And then went to basically places that just sounded cool and interesting to us. And it was a great experience for our family in terms of bonding and being together, and a way to spend time together where we weren't all distracted by work or school or birthday parties or soccer practice or all the other things that make a modern family kind of distracted and pulled in different

Scott Benner 4:25
directions. Yeah, wow, that's awesome. How many kids do you have?

Speaker 1 4:29
We have four, three boys and one girl, and my youngest is the one with diabetes. My youngest son. How old is he? He's now just turned nine and he had he was about to turn six when he was diagnosed,

Scott Benner 4:42
and fair to say, Sarah, we would qualify you as a go getter.

Speaker 1 4:47
You know, I love that there are so many wonderful opportunities available in life, and so I am enthusiastic about learning and discovering things in the world and spending time. In a really values based meaningful way.

Scott Benner 5:02
I met my future husband while I was climbing Everest by myself. I'm an anesthesiologist. I figured out a way to go on a trip. It sounds to me like you're a go getter, so it's an interesting model for me, like while we're talking about this, because it tells me you're always looking for ways to improve things or experience something, and I think that's going to make this conversation really interesting. So tell me a little bit about the lead up to your son's diagnosis. What did you see? How did you figure it out? What did the first days

Speaker 1 5:33
look like? Yeah, well, a big part of me feels really, really stupid, because honestly, I didn't see anything. My son was completely normal. There were really, we didn't see any signs at all, except, in retrospect, he started bringing a glass of water into his room at night. But otherwise, really no signs. And then on my oldest son's birthday, we were having cake for his birthday. And then my youngest son started to throw up repeatedly. And you know, we have four kids. We have had many children throw up many times in many situations, as you can imagine. So we didn't take it too seriously, but he just wasn't quite getting better in the way that I would have expected him to over a period of hours. And eventually I brought him into our emergency room, and the ER doctor, who I knew, looked at him. Just took one look at him. She's very experienced ER doc, and said, Oh, I didn't know better. I would think he has diabetes, you know, that was confirmed through a blood test. And because we live in a small, rural area, we had to be overnight, you know, life flighted into a larger hospital and take multiple ambulances and fixed wing airplanes and another ambulance and go to an ICU. We were just there overnight, and then he did great after that, and we were able to go back to our home. So it was a kind of dramatic diagnosis, and all of this was layered on top of the fact that we were planning to go first to Hawaii in a week and a half, and then then to this huge around the world trip that we had already planned in about six weeks after that, so that that was a layer that probably more stressful than you know, it would have otherwise been. We weren't sure if we'd be able to go on the trip. And actually, the doctors at the Diabetes Center were great, and were kind of, like, there's no reason why you would not be able to do this. And were instantly supportive.

Scott Benner 7:33
Awesome. How quickly when it's your own child, does your brain forget that you went to medical school too? Like, when do you turn into, like, somebody's mom? Like, do you know what I mean? Like, am I asking that question in a way you understand what I'm saying? Oh,

Speaker 1 7:47
totally. And there are lots of great stories about how much humility doctors should have around their own friends or family members when they're diagnosing or, you know, considering anything vaguely medical, because almost always they will miss it. I remember lots of stories about how a pediatric cardiologist missed a heart defect in his own son, for example, or a pediatric infectious disease doctor rushed his daughter for to the hospital for a routine case of croup, which any infectious disease doctor knows the difference? Yeah. So it's, it's very common, but it's still very humbling to, in retrospect, realize that my son was having signs and symptoms that I just, I just missed. It just was not on my radar at all. You know, you're going along with your life and, you know, trying to manage your life and your kids and all these things, and the fact that your kid is drinking a little more water just doesn't necessarily come onto your radar, right? I

Scott Benner 8:42
have an experience where I was contacted privately by a literal brain surgeon from Hopkins. I realized when I was speaking to him about his child's diagnosis that he was as confused and sad and scattered as everybody else I'd ever spoken to about this, about the situation. None of his background helped him. I don't know. He was so and he was honest about it. He was just like, look, I don't know anything about this, and I need help. And I was like, Okay, it's the first time that I did that math, you know? I mean, I was like, wow. Like, in this situation right now, this guy is as lost as he could possibly be. And you would think from the outside that, I mean, if this was gonna happen to anybody, here's a person who could figure it out. Now, eventually, when he had all the information, he was okay. But in the beginning it was, he was just as startled as everybody ends up being. So absolutely, yeah, so you okay? So you have to learn about type one in a very short amount of time before you go on this trip. It does occur to you, maybe we shouldn't go. Somebody gives you some support. Says, No, you should do it. I guess the question should be, what did you learn through that experience of traveling with type one?

Speaker 1 9:47
We learned so much. I think the main takeaway is that it's just extremely doable. It's really not a problem at all to travel with type one. The hard things are. Are getting through airport security and finding food that's, you know, kind of diabetic friendly, and those are things that are extremely manageable. You know, our son hasn't ever needed hospital level care after his initial diagnosis. And that was something that I didn't like you mentioned. I didn't really understand how rarely we would be interacting with the medical system, which is great. We thought that we would need a higher level of support available, like we were, for example, spending three weeks in the islands on the Galapagos, which is obviously extremely remote, with very limited medical care. And we were really worried about that, but we were able to, as most diabetic parents of a diabetic child are able to manage almost all situations ourselves, and the likelihood that we would need a a hospital kind of situation was much lower than we initially thought it might be. So that is actually, you know, that's been very reassuring. You know, it's in that way, it's easier than something like, you know, severe allergic reaction, for example, or asthma that can cause kind of unexpected needs for hospitalization. So in terms of the food, you know, it's kind of funny that the poor kind of country you go to, the more likely they're going to have diabetic friendly type foods. South America really reliant on beans, avocados, you know, some meats, those kind of things. And then in the Middle East, there's a lot of similarly kind of bean based dishes, like like hummus and chickpeas. And then also, you know, we've eaten kebabs literally everywhere in the world. Like their kebabs have really infiltrated into every country that we've ever been to, those kinds of foods are so great for our kid, because he loves to eat them, and then also just helps us guess how many carbs. More easily we're just able to able to anticipate what his reaction might be, more easily than you know, honestly, places like Europe are the hardest because they are very bread, pasta and sweet space, and so those are just harder for us to to dose them for. And the other countries you've

Scott Benner 12:05
been so many places, let me ask you about food specifically. Is America the hardest place to find food that's not hard on blood sugar, like I know you'll find it if you look for it, but I guess, like readily available. I had to go somewhere last weekend. It was an early morning thing where I drove somewhere by myself, and I ended up at this place, and on the outskirts of it was a McDonald's, and I sat and just kind of, like, remarked to myself, almost in my mind, how crazy it was that there was an endless line of cars, and not cheap cars, or, you Know, broken down cars, or, like, like, nice vehicles with, you know, full families in them, just going through and treating this McDonald's like it was a real place you should be eating. Does that make sense? And like, and everyone was leaving with, like, hot cakes and this and sandwiches. And then I sat and watched for a few minutes, all I could think was like, Wow, there's so many people around here who think this is breakfast. I know how difficult all that would be to Bolus for if it was a situation that that we were in, like, you know how much more you'd have to understand about how insulin works and the amount you're going to need and everything else. Like, I'm just wondering. Like, I think those people were mainly in that line because it was quick and easy, not because they thought, oh, you know what would be awesome if I had an Egg McMuffin today in other countries, is there just no such thing as quick and easy? Or is even quick and easy more basic staple types of foods?

Speaker 1 13:29
Those are all great points. In a lot of countries, like you're mentioning, when we lived in Spain, there is no takeout coffee. That's just not a concept. For example, like there's people would be very confused about why you would have to be walking while you drink your coffee. You know, if you need a coffee in the morning, you go to a restaurant and you interact with people while you are having your coffee, and then you go somewhere else, yeah, and maybe a very short interaction, but you're not wandering around, walking and eating and drinking like we do in the United States. There was a recent New York Times article about is the bread in Europe better for you, for example. And we actually have found that our son does react better to the bread in other places of the world, where it is, you know, does tend to be, you know, more real bread, less of the you know, many ingredient bread for the bread that is actually just right? So

Scott Benner 14:24
stuff that'll sit on a shelf and be stable for a week or so, right? Okay,

Speaker 1 14:28
right. So it's all fresh, you know, that ingredients are flour and water and maybe some salt and oil, and that his, you know, his spikes just aren't nearly as high with that kind of bread. So that is definitely interesting. And then think there's also this idea that food is meant to be a social experience, and you're you're sitting down with other people, and that also just leads to to naturally, you know, you're not throwing food in your face as quickly as you can, which not be great for your digestion. And I. Right, and blood glucose overall. So I think the culture around food in the US makes it really hard. At the same time, there are a lot more choices here than there are in other countries. Yeah, you know, we've certainly been a lot of places where the choices are, you know, hummus and hummus, hummus and hummus, baguette and baguette. You know, us is always spoiled for choice and poor on time so that, but we definitely prefer to take more time and eat better food when we can.

Scott Benner 15:25
Yeah, okay, what's his regimen like when you leave for that first trip? Are you just they give pens, give a CGM. What do they give you? Diabetes comes with a lot of things to remember, so it's nice when someone takes something off of your plate. Us. Med has done that for us. When it's time for Arden supplies to be refreshed, we get an email rolls up and in your inbox says, Hi, Arden, this is your friendly reorder email from us. Med. You open up the email, it's a big button that says, Click here to reorder, and you're done. Finally, somebody taking away a responsibility instead of adding one. Us. Med has done that for us. An email arrives, we click on a link, and the next thing you know, your products are at the front door. That simple, US med.com/juicebox, or call 888-721-1514, I never have to wonder if Arden has enough supplies. I click on one link, I open up a box, I put the stuff in the drawer, and we're done. Us. Med carries everything from insulin pumps and diabetes testing supplies to the latest CGM like the libre three and the Dexcom g7 they accept Medicare nationwide, over 800 private insurers, and all you have to do to get started is call 888-721-1514, or go to my link, us, med.com/juicebox, using that number or my link helps to support the production of The Juicebox podcast. This episode of The Juicebox podcast is sponsored by the Eversense 365 get 365 days of comfortable wear without having to change a sensor. When you think of a continuous glucose monitor, you think of a CGM that lasts 10 or 14 days, but the Eversense 365 it lives up to its name, lasting 365 days. That's one year without having to change your CGM with the Eversense 365 you can count on comfort and consistency, 365 days a year because the Eversense, silicon based adhesive is designed for your skin to be gentle and to allow you to take the transmitter on and off, to enjoy your shower, a trip to the pool or an activity where you don't want your CGM on your body, if you're looking for comfort, accuracy, and a one year wear you are Looking for. Ever since 365 go to ever since cgm.com/juicebox

Speaker 1 18:03
to learn more. Yeah, we pushed to have, at least when he was diagnosed, the kids were supposed to do just regular injections for a while, and then move to pens, and then to CGM, and then to, you know, to an insulin pump. And so we push to have all those things very quickly. And I imagine that me being a doctor probably made that easier. Just, you know, in all honesty,

Scott Benner 18:30
they assume you'll figure it out to the light you had earlier. Okay,

Speaker 1 18:33
right? And I've, you know, and I've given people insulin plenty of times in my life, too, and I have a sense of, you know, how much is too much. And you know what a normal range is. But that being said, my husband does most of my husband stays home with our kids and does most of my son's glucose management, just because he's more available and more able to follow on a you know, hour to hour basis regularly. And he, of course, picked it up very quickly and is very, you know, very structured. And, you know, he's smart, and he and just very interested in figuring out how to do it the best way he could. And so it, despite it being my medical background, that kind of allowed us to have access to these tools, probably a little easier. It was really just my husband's motivation and natural interest in tracking things and numbers that allowed us to do a good job with what's

Scott Benner 19:22
his background? Besides being able to pick up a doctor on a mountain, what's he

Unknown Speaker 19:27
important life skill? I think it

Scott Benner 19:30
might be his most important life skill.

Speaker 1 19:34
But he has an education degree and a Master's in Fine Arts and photography, nothing that would obviously point you towards being amazing at managing diabetes, but he really wants our son to be healthy and happy and and he loves he's also very good at math naturally. And so that part of it is appealing to him.

Scott Benner 19:56
It lends to this thing he needs to do now,

Speaker 1 19:59
right? Exactly. So basically, when we got those tools, we had been using them for the pump and the CGM for probably two weeks. By the time we left, we didn't have a ton of experience with it, but they're pretty intuitive and easy to use. The hard part of it was really getting through the security The first few times we went somewhere, places do not like it when you don't put your stuff through the security the

Scott Benner 20:24
scanners. Boy, I'll tell you, this is a thing that I can't wait to hear you talk about, because we just traveled two weeks ago with Arden, and Arden's flown a number of times with diabetes. And I have to tell you, like, I don't get why people have trouble with security, like, and only because we never have I'm trying to figure out, what's the mechanism like, why is does it go so smoothly for us? And yet, I hear some people that are just like, they have these horrible Can I tell you that the first time we went through on our trip recently, and we were just flying inside the country, so, like, we weren't, it wasn't an international flight. But when we got to the security the first time, not TSA Pre check or anything like they were just going through regular security, my wife says, Don't forget to tell them that you have juice boxes in your carry on. So the way we do it is we pack extra supplies in the belly of the plane, like into somebody's bag, right? I bring enough to keep like, five people with diabetes alive for the amount of time that we're going to be there. And by the way, that bag almost never gets opened. And then we hand carry enough for the trip as well, like so, in my backpack I had we were going to be gone for a week. In my backpack we had five OmniPods, three dexcoms, enough insulin in a in a cylinder with ice to you know, three vials of insulin, way more than we would need, a glucagon pen, two juice boxes for the plain gummy bears like all this is in my backpack, and I say to the person when I put it on the belt, hey, listen, my daughter has type one diabetes. There's juice and insulin in here. And he goes, Okay, and then I watched him not tell anyone, and then I thought, Oh, My bag's gonna get hosed because he didn't tell the scanner person. My bag goes right through, pops out the next then nobody says a goddamn word about anything. I've got juice boxes in there. You would think they'd want to swap them, right? Nothing. And it's a major metropolitan airport, and Arden walks up to the thing and says, Hey, like, I'm wearing an insulin pump. And they go, okay, and then she goes through the scanner, they scan her, they pat her down, and then she moves right on. I was like, Huh? That's weird, because they usually at least swab her pod, you know, like with that explosive swab, they make sure it's not, you know, not even that. And we were right through and on our way. So on the way back, I forgot to say there's juice boxes in my in my no one mentioned it again. I actually watched a ladies bag get pulled out instead of mine, and she had hand cream in it. I was like, I have a metal cylinder with liquid inside. It looks like a bomb. I'm not kidding. Nobody said a word. So I'm like, I don't understand. And then you go online, and people are like, in the middle of a pat down process that looks like it takes a half an hour. So I'm interested to learn what you learned and where you had hiccups. I'm sorry that was long, but like, I this just happened to us. It's fresh in my mind. Today's episode is brought to you by Omnipod. We talk a lot about ways to lower your a 1c on this podcast, did you know that the Omnipod five was shown to lower a 1c that's right. Omnipod five is a tube free automated insulin delivery system, and it was shown to significantly improve a 1c and time and range for people with type one diabetes when they switched from daily injections. My daughter is about to turn 21 years old, and she has been wearing an Omnipod every day since she was four. It has been a friend to our family, and I think it could be a friend to yours. If you're ready to try Omnipod five for yourself or your family, use my link now to get started. Omnipod.com/juicebox get that free. Omnipod five Starter Kit today, Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox

Speaker 1 24:18
Yeah, it is really interesting. The variability is huge, and we've experienced everything from what you just described to people literally not allowing us on the plane, almost to because of these kind of supplies. So big picture is that in industrialized countries, where they're used to seeing diabetes devices and people with diabetes, it's a lot easier, so almost always in places that have you know, there are a lot of people with diabetes these days, so they see, you know, these devices coming through regularly, and it's just not nearly as big a deal. So they the familiarity is a big piece of it. We also. Learned because we go through our local airport quite often, and every time, it seems like a completely different experience.

Scott Benner 25:07
It sounds like you live in where northern exposure was filmed, but like

Speaker 1 25:13
we have a big airport near us, and so when we go through that airport, what we've learned is that for kids, for any kind of like security issue or pat down or anything. It's up to the supervisor on at the time who can make any one of a variety of decisions on any where on the spectrum, but it's dependent on that person, okay? So that's why it's a little different. Every single time we go, we don't really know where to fall on the spectrum of whether the OmniPods and Dexcom should be put through the scanner or not, but just erring on the side of caution, we've requested that they be hand checked, in part because, since we travel in different parts of the world, we can't be sure of the amount of radiation that they're getting. You know that some of those machines just might not be checked as well or kept up to the same standard, so we just kind of ask for them to be hand checked every time. That has led to us being stopped in you know, in Egypt, for example, anywhere in the Middle East, you go through two different security checkpoints, once right at the beginning of the airport, and then again, right before you get onto the plane. And so both of those times are opportunities for people to be very confused about what, what you have, what it looks like, why it can't be can't be scanned and needs to be hand hand checked, why they can't open it, and, you know, make it un sterile, and those kinds of things. So we always bring, now a letter from, you know, from our local Diabetes Center that's translated into local language. Something we didn't initially realize was that although a lot of people in a lot of places can speak some English, that doesn't mean they can necessarily read English. A few times, had the situation where we handed someone our letter in English from Diabetes Center about the devices not being scanned, and they kind of just put it aside, and we later realized that it was probably because they just they couldn't or whatever, taught to read it. Right?

Scott Benner 27:02
Whatever, taught to read it, right? Yeah, we used to do the letter thing. We haven't done it recently. We used to carry a letter from an endocrinologist. But I can see why going overseas would make it even more important,

Speaker 1 27:12
right? Exactly. So we take that and then we use Google Translate to translate it into whatever languages, the local languages of the places that we go. We always immediately take it out of the of the carry on, put it in a container, say it needs to be hand checked often. That needs some reinforcement, because people kind of just like, take it and then put it on the on the tray to scan it. You're like, no, no, that's not going to work. By doing those two things that takes care of most of the problems. But we've had to wait for the supervisor to come many places where, in Azerbaijan, for example, super nice people, and they just literally had no idea what to do with us, yep, and they really wanted to. So first we had the, you know, the regular security people come, and they kind of looked at the letter, and they looked at the devices, and they were like,

Scott Benner 27:55
huh, above my pay grade, right? And then they go to, yeah, right. So then

Speaker 1 27:59
they call their supervisor, and they have to come in from wherever. So in the meantime, they called the doctor on call the hospital who came over and was like, Yeah, this is diabetes devices. I'm going to go back to sleep. Supervisor comes, and then the other supervisor comes. So then, then we had to go through another security checkpoint. So shortly after that, and said, you know, Would one of you mind a company so we don't have to, you know? So people know that we've already kind of been checked out, and they're like, oh, all the security department is already here. There's no one else to go through the other side, because everyone is right here already. So, you know, people are really trying to do their best and just follow their protocol. Often, just in some countries, a protocol does not exist for this kind of thing. And so, you know, understanding that

Scott Benner 28:40
too. You're waiting to get to a person in charge that'll say, Okay, fine, yes, yeah, exactly. We've also lived through that experience too, right? Right here in America as well. Like, it's not, it's interesting. Certainly, seen someone look at that Omnipod and go, I don't know what that is. I don't want to be a part of this, right? And then go get a supervisor who comes over and looks at it and starts like, what is it? You explain it to them, and then I don't know if it's more confusing, because it's on a kid and you said diabetes, sometimes you know what I mean, like. And then there's like, well, we'll have to swab it to make sure it's not explosive. And they swab it down to go back for a second. We started off asking for our stuff to be hand checked and not to go through the scanner as well, too. But over time, I'm wondering if this is one of those things, like, the longer you live with diabetes, the less you kind of if maybe, like, my way of going through airport security isn't the like swag at a restaurant version of bolusing after you've had type one or been around type one for 20 years. You know, you're just like, I don't know. It's probably like 55 cars. Let's go. Maybe you just stop paying that close of attention to it. But that's

Speaker 1 29:42
probably true. I think that's probably true, and we are probably being overly cautious. I have that thought, but then I also have the thought that, you know, any testing that they've done probably hasn't been like going through 10 different security scanners of varying level of, you know, caliber. Situation over a period of time. So, you know, I think, because, also, since we're traveling and we don't have easy access to a backup, like, if they, you know, if it did seem like, oh, oh gosh, it seems like they're all of a sudden failing, or failing quickly or something, yeah, getting new supplies would be, would be pretty challenging, and that's usually our we have almost we travel with our entire supply for the entire, you know, months of trips. Do you

Scott Benner 30:25
split it up into different bags? Like, if I did that, I would think, if this bag gets lost, We're so screwed, like, I would probably split the supplies up amongst different do you how do you manage that? Or do you not have the same fear I have? We

Speaker 1 30:36
travel very light, so we each just have one backpack, and then we have one carry on with mostly diabetes supplies in it. And we, we carry that on. It's a, it's a carry on, okay, yeah, you don't

Scott Benner 30:45
let it out of your site. Then, yeah, exactly got you. I mean, honestly, that's what I end up doing, is I bring enough stuff to get by, and then I bring extra stuff, you know, in a packed bag that gets checked the last time. I don't even think I ever took it out. Like, you know, I think it sat in a check bag the entire time. Nobody ever took out the extra stuff. We never dipped into the extra and it does. It hits me every time we travel, like, I'm bringing too much stuff. I don't need to bring all this. I just think, like, I don't, not usually like this about other stuff, but I'm like, the one time I don't bring this stuff, it's definitely gonna go something's gonna go wrong. But at the same time, like, if you don't leave America, it shouldn't be too difficult to replace stuff if you had to it just definitely, yeah, it shouldn't be too tough. But I'm taking your point about going over to seas. There are people from some of the places you've traveled. There are people who live in those places, who fly here just to get their diabetes supplies and then fly back home again. Exactly? Do you carry enough stuff to do it manually if you needed to?

Speaker 1 31:43
Yes, we also carry, we carry one of those, you know, those cylinders also with a with the ice pack, and then in there, we also carry enough pens and vials of insulin and and other supplies to to get us by, to do, to do everything manually if we

Scott Benner 31:59
needed to. Well, you said, How long was this trip for? 50 days? Did you tell me

Speaker 1 32:03
the first trip we did was about five and a half months, and then we've done since then a few three month trips. We're about to go to France for for a few months to do French lessons.

Scott Benner 32:13
How much insulin do you take with you for a five month trip? Think we

Speaker 1 32:17
had six miles or something like that. Oh, okay, his knees are pretty minimal. And that's also something that you can get, like, of all the possible things, plain old insulin. That is something that you can get almost anywhere these days. Interesting,

Scott Benner 32:31
okay, hey, what do you carry the insulin in? I'll just tell you that we I used a, it's a, you know, it's a cylinder that is made to keep things hot or cold. I take insulin out, I take a paper towel, fold it in threes lengthwise, wrap it around the insulin. I put a rubber band around it to try to insulate the glass so that it like if something bumps into it, it can't break and so that doesn't come in direct contact with ice. I put it inside of a baggie, I put the whole thing inside of the cylinder, and I pack ice on either side of it, and that's it. That's how I travel with insulin. But what do you

Speaker 1 33:09
do? We have a, and this is there's no relationship, but we have a, there's a company called all for family. I think that makes different size cylinders for medication and travel. And those have been great. They make a small size and a larger size. So for our bigger trips, we use a larger one. For our shorter like one month trips, we use the smaller version and and it's easier. We also do use those, those plastic coverings on the insulin vials, the that the shock that make them less, yeah, exactly. So we put those around them, and we just shove them right in there, and they stay for a long time. And that also means that you have to have a freezer to get the you know, to make sure that the frozen pack can still stay frozen over your period of your travels. So we've put it in a random freezer in someone's kitchen, you know, at a Airbnb, or we've, you know, at a hotel. A lot of places don't necessarily have a freezer inside their mini fridge, and so we've put it in the in the kitchen of the of the hotel. And in different countries, people are usually very nice, especially if you say that it's for your

Scott Benner 34:19
kid. Yeah, there's many places in the world that you can't get ice, really,

Speaker 1 34:23
yeah. So we don't, we definitely would not rely on ice, because it's just too unreliable. It's just too variable to be able to find ice. And also, within going through security with ice and if it's melted, is much more confusing to the security checkpoint people, I

Scott Benner 34:40
have to say, like, it's, I just put ice in, and then when we get somewhere, if it's a long travel that goes over days, like, every once in a while, I just bleed out whatever melted, and throw another handful of ice in and keep going, like, it's funny, like, you and I do the same thing. I do it with paper towels and ice, and you do it with cold packs and, like, little like, shirts that go over top of the insulin packs. Well. About the level of comfort for your son. So I know about all the things you're thinking about. Is he too young to really consider it? Because I've watched Arden as she's gotten older, think more and more about it when she's traveling, like, when she was younger, she just assumed we were taking care of it. And now that she's older, I can see her like, Hey, where's my stuff? You know, where's this kind of thing at like, how much of this does he know to be concerned about? You

Speaker 1 35:25
know, he is an exceptionally responsible young person, and he does a great job managing his own diabetes, and always has. He knows all of his carb counts. He knows how much he needs. He can he could really do it all on his own in terms of bringing stuff. He's also generally very good about saying, you know, where's my pack, where's my stuff. You know, get everything. We did have an incident where we had said, Do you have your pack? And he said, Yes. And then he went to put his shoes on and put his pack down, right before we got in the car to drive to the airport to go to Morocco, which then meant that we had no daily pack that has his finger stick stuff in it. We did not have that, which was a little stressful, but we just, you know, when we got to Morocco, the first thing we did was go to a pharmacy and buy another one, and it was $20 and totally fine. No big deal. You know, that pack had we used cashews quite a bit for him. So and, you know, and glucose tabs. We were able to find both of those things very easily. Basically, we're able to redo an entire pack within about a half hour period in Morocco. So, you know, almost anywhere now has a pharmacy that is, you know, honestly, so many people have diabetes, type two diabetes, in the world now that didn't used to those kind of supplies are much more readily available than they used to be.

Scott Benner 36:41
One of my biggest takeaways so far, takeaways so far is when you said that earlier about the devices at the airport, like they they're more prevalent now, so more people have seen them. And like maybe it was easier two weeks ago when we traveled than it was 10 years ago, because they've seen more OmniPods and dexcoms go through. Surely does have something I'll tell you the during our last trip, the most scrutiny Arden got was trying to get into a professional baseball game. Oh, interesting. They went through her bag. Actually, I'll share with you what she did. So, you know, she's like, Hey, I have type one diabetes, so there's some juice boxes in there. You know, I have an insulin pump with me, an extra CGM, like, this kind of stuff. Like, we have enough, like, in our minds, I don't want to go to a ball game, have a CGM fail, have a pod fail, and then that ruined the entire experience. And us have to get up and leave that, that event right. Like, we went to all this trouble to go there, like, that kind of thing. So she has enough stuff with her that her stuff could fail while we were there, and it wouldn't change the event for us. So she's got one vial of insulin, and the guy's like, digging around in her purse, and she's, she said to me, dad, it was going on too long. And I was like, okay, so he says, what's that? And he points to GEVO hypo pen. And my daughter goes, I know how to put an end to this. She goes, that's the thing I use if I have a seizure. And she goes, he went, Oh, and backed up out of her bag and handed it back to her. And she was like, I'm gonna remember that for next time. So basically, she's like, I made him uncomfortable. And he stopped, right? But she did it on purpose. Like, he's like, what's this? Oh, that's an insulin pump. What's this? What's this? And he's picking around in her bag with this. Have you ever done that? They use the stick to move your stuff around because they don't put their hands in there, which makes a lot of sense. And then he's like, what's this? And she just goes, Oh, that's the thing I use in case I have a seizure. And she's like, that just put an end to the entire transaction. He just was like, Okay, great. And, like, hands the back, back to her. And I said afterwards is, did you do that on purpose? She goes, yeah. She's like, it just it was taking forever. And then she's like, I just made him a little uncomfortable on purpose, and he stopped. I was like, Oh, that's interesting. I don't know where she learned that from, but anyway, there's some advice for everybody

Speaker 1 38:51
listening. There have been just a couple times where I've had to resort to saying things like, if you do whatever thing, you know they're trying to take away the insulin, or whatever they're trying, whatever kind of silly thing they're trying to do. I say, you know, my son could die. Do you want my son to die? Because that's what's going to happen if you, you know, that's what could happen if you continue to do that. That usually kind of similarly gets their attention enough that they,

Scott Benner 39:14
yeah, I mean, I said to her too, like, you know, like, in all fairness, like, here's a retired guy who grabbed the job at Petco Park, right? You know? And he's just out in the sun enjoying his life. He's supposed to be picking around, making sure nobody's bringing a gun or a knife in here, yeah, like, all of a sudden, you start talking about insulin and insulin supplies, and he's like, wait, what? You know? He got confused and and then he starts to go slower and pay closer attention, because he doesn't know what he's supposed to be doing or not doing it, whether it's in a medical situation at a hospital. And you and I talked a little bit before we started recording, and I have to be honest with you, I'm totally gonna invite you back on, Sarah, to talk about that other thing that you do, but like, whether it's in a hospital situation, whether it's at a security thing, whether it's at an airport, in the end, you're just dealing with people with different levels of understanding. Thing exactly. You have to be ready to clearly, concisely. That's not a word without getting emotional, like, explain your situation. And I do think that sometimes I see people have trouble because they get offended or they get like, like, I shouldn't have to do this like, and they're not wrong. You shouldn't have to do all that. It does suck. The person you're asking to do this thing, they have a job too, and they have a level of understanding. And, you know, like there's, it's in the end, it's communication. Really

Speaker 1 40:30
Totally agree. And we've definitely found that, you know, having that understanding has been really key for us, especially in these countries where foreigners are fairly unusual that, you know, if you're just nice to people, and you really, you know, they're just doing their job. They're trying to, they're trying to do a good job, yeah, and that's great. And they're trying to keep everyone safe, like wonderful, give them the information that they need to be able to, you know, take things to, you know, to get past whatever obstacles as much as possible. People generally are, are really nice around the world, and want to help you, and want to they see a little kid and they feel bad for him, and, you know, they they don't want to be a mean person to a little

Scott Benner 41:13
kid. Yeah, right, yeah. And put yourself in there. I know it's like overly simplistic advice, but put yourself in their position, right? They're trying to do their job and and are you also saying that you go to a lot of places where there's not a ton of Americans coming through to begin with? Okay, right? Exactly. So it's already strange, and now there might be a language barrier, etc, right? How do you find traveling to a place where you don't speak the language, where you feel very out of control? Because you mentioned earlier, I have to tell you, you mentioned my only bucket list trip that, like, I know I'm gonna get to the end of my life and just be like, I can't believe I didn't go to the Galapagos Islands. It's the only thing I wanted to do. But like, I look into it, and the plane ride seems a little too far, and the language barrier seems like a little too much. And like, I'm not as adventurous as you are when it comes to travel. How do you get through all that without it being an issue for you?

Speaker 1 42:04
Honestly, a big part of it is just the basic belief, which I which I can tell you already have, which is that people are nice and want to help you, and so the kind of just faith that people will help you. I mean, we have been helped by people nearly 100% of the time when they could have ripped us off. The language barrier, especially now, is just not that big of an issue. Like in the Galapagos, lots of people speak English, and I speak Spanish fluently, but there are lots of people who speak English now in the Galapagos, and we also didn't, by the way, didn't do a cruise, because those are very expensive, and I get very motion sick. We actually just went from Island Island, and it was much cheaper, and just, it's pretty amazing experience, because very few tourists actually stay on the islands instead of on the cruise

Scott Benner 42:47
ships. Yeah, I don't want to do a cruise to there. I want to, I want to stand there and wander and stare. That's what I want to do. Yeah,

Speaker 1 42:54
that's a that's the way to go. But we've been to places, you know, I can read some French and I speak Spanish, but lots of places we've been, we haven't spoken in English. You know, the translating apps are great. They work pretty well in, you know, many circumstances, not all. So those can help. You're right. A lot of times you're just not in control. You kind of look around and you kind of hope that, you know, you kind of get in a car with somebody, and hope that you end up in the right place. Usually you do. I think it really does come just down to that, having that faith that people in general are good and want to help

Scott Benner 43:27
you. How many times you've been walking down the street with your four kids and you're what I'm assuming is incredibly handsome husband. I mean, honestly, he's going up at risk with his friends. He picks you up there. Like, What is he like, six three, he's gorgeous, right? Yeah, no, no, no, I trust me. I It's like a Hallmark movie, I guarantee it. How many times have you been walking somewhere and thought, Oh, we've made a mistake, we're all going to be dead in a minute. Oh, never, never. You've never thought I made a wrong turn. We're in the wrong part of town. I did the wrong thing. Oh, my God, we're in trouble.

Speaker 1 44:00
That's never happened. We've we've definitely had moments where we've thought, Okay, we need to kind of get out of this area fairly quickly. Never have we felt that we were being targeted or people were purposely making us feel unsafe. Okay, there's just a basic human goodness where people don't want to be you know, first of all, it's a lot of hassle if you have a lot of people around to you know, you have six people instead of one person that you're trying to target, that's just more

Scott Benner 44:26
hassle. See what you're saying, you've made a brood big enough that it's not worth the effort. Exactly. There's just too much trouble. They're going to rip off a family of four. It's going to be much easier. You

Speaker 1 44:35
know, most of the ripping off that happens is more financial ripping off, like charging somebody more than, more than it's worth. But I'll tell you, you know, we were in Tunisia, and we got there, and we had a driver planned to take us to some really incredible Roman ruins. Tunisia has some of the best Roman ruins in the world, and no one ever goes there. And so they're basically completely, you have them completely to yourselves. It's amazing. And we had, we had no cash that they use Tunisian i. Money, and we had, we didn't have any, and we also were running low on euros at that point, so we were going from ATM we had the driver take us to several different ATMs to try to get money, and for whatever reason, our car just would not work at those ATMs. So we're kind of starting to get a little, you know, nervous about being in a country with zero money. And then the driver kind of figured out what was happening, and he spoke almost no English, but he said, Oh, you need money. I have money. Here's some money. Take my money. It's okay. We figure out later. And he literally just started giving us cash. You know, this driver, who I assume didn't have a whole lot of cash to just be throwing around, was just so kind. And, you know, it's like, just take my money. It's not a big deal. You can pay me back later. And then the person that I had arranged the driving the car with called and said, Oh, the driver said, you're having trouble getting money. Just meet me at this corner. I'll give you some money, and then we'll figure it out later. Like, don't worry about it, just enjoy your day. And we'll figure it out later. And to me that that is much more of the attitude that we have encountered is more like we're happy to have you in our country, our culture is such that we prize hospitality and kindness towards strangers. And we want to show you that part of our culture, for us, this is normal, like, if somebody doesn't have money, we would just give them some money.

Scott Benner 46:20
You know, that's lovely, I mean, and you're right, that is my general expectation. Like, I really do feel like most people are kind and want to be, and if I was by myself, I have to be completely clear. Sarah, if it was just me, I'd go anywhere and do anything. The minute I involve my wife, I feel incredibly responsible for her safety. And then the same thing for my kids, like, I'm like, I can't put them in a bad situation. And I know that's that's not the attitude that gets you to Tunisia. It is how I feel. Like, I don't know why I feel that way, but

Speaker 1 46:51
totally understandable. You know, I think definitely one of those things where the more you experience kindness from people in all parts of the world, the more you expect it, and this that virtuous cycle. Very

Scott Benner 47:03
cool. Hey, I noticed in your notes that you listed one thing that it never occurred to me, like dealing with a lack of outlets or Wi Fi, like, how many places have you been where you're like, Oh, the phone that runs, the thing is dying and we can't charge it back up.

Speaker 1 47:16
Yeah, that is a surprisingly common situation where maybe there will be one outlet for for all of us, you know, for all six of us in a room. And so, of course, my son's diabetes devices get priority, but it still means that then maybe my husband or I have a dead phone, or that, you know, it doesn't quite charge it as much as we would hope. Or, you know, this even happens when we're now, we have portable charging devices, which are, which help a lot, but those were not as prevalent when we started traveling. And then we've, you know, we went to Jordan in the desert, so there's Wadi Rum. Is this big desert in Jordan where it's really, it's where Star Wars was filmed. It's in the middle of nothing, right? And they just didn't have any chargers. Having to think through, you know, well, how we need to then charge right before we leave for this place. And then we need, we're going to need to charge right when we get back. Or, you know, can we ask the driver to, you know, let us stop at a cafe or something for, you know, an hour to charge on the way, right? So just kind of planning for that kind of contingency that we hadn't really thought about before we started traveling. But, you know, in a lot of places, most people don't need to charge one device per person, plus an extra, you know, one or two devices for the diabetes.

Scott Benner 48:38
I'm sitting in a 12 by 12 room, and as you're talking about it, I'm looking around, I think there's 30 things plugged into this room. We don't grow up living with, like, Oh, where am I going to plug something in most of the time? And then, right, yeah, you get somewhere else that, like, yeah. Just just occurred to me. I was like, I'm like, there's a power strip there, there's a power strip there. There's a power strip there. There's five outlets in this room. I realized it's becoming more prevalent in some parts of the US. But like, I've never once thought, like, what if I don't have electricity? Like, when people are like, I have a generator. I'm like, a generator for what I've been alive for 54, years, the power has only been out for an hour. Like, three times. I live in a place where there's so many people here that they, you know, you can't afford a power outage, because these people will go crazy, like they'll be looting and rioting in five seconds. So they got to keep the electric on, yeah. Oh, that's a really interesting and those power bricks, those new kind of, like portable battery packs, they really work great nowadays too. They

Speaker 1 49:34
really do. And so those have been super helpful. Now, my son does everything through his iPhone, but before he had a PDM, so then we would have to charge both of those, of course, and that was always those don't take those portable bricks. And so that was an issue. And the power outages are definitely an issue, including for things like the insulin and the and the ice packs. You know, sometimes refrigerators just aren't cold anymore. That's. Another thing that we've kind of just had to be aware of when those things happen is, how can we kind of quickly gather up the insulin and the ice packs before things start to melt?

Scott Benner 50:08
I also imagine in the back of your head, you know, if the ice packs go away, that insulin, you still have time, even after it warms up. It's not like, it gets warm and then it just explodes. So like, you still have a month now that it's room temperature, whatever, exactly, yeah, and you know, it's not like, it's not like it's gonna, it's not a ticking time bomb. You'd have to maybe make your way to somewhere again to get insulin if you were on a super long trip. But it's not like you're, you know, isn't it funny? Like people all the time are so worried about refrigerating their insulin, but then they put it in their pump and go outside. It's 96 degrees outside, and no one ever thinks twice about that. So,

Speaker 1 50:44
I mean, honestly, the insulin and keeping it cool was something we were really worried about. It ended up being once we figured out a system to keep it cool, because we have been to a lot of very hot countries where, you know, it can stay at room temperature, but yeah, you know, having it kind of sit in a bus for four hours in 100 degree heat is like, maybe not the best, right? It hasn't really been an issue because we've been able to keep it cool in these these cooling systems. The charging has been much more of an issue than we than the insulin being cold has been.

Scott Benner 51:13
Arden went into the city for something, and I was like, Look, I don't want to see you have to hump around a metal cylinder with insulin in it. Like, you don't even mean, I was like, and I looked in the refrigerator, I was like, well, we have this vial here. It's like a third of the way full, yeah? Like, just put it in your bag, you mean, like, and it'll get warm, and then bring it home and we'll use it up. Yep. That's kind of like how we like, if something like that, like, I honestly, I can't make her take a tumbler to New York to see a play. You know what? I mean? Like, it just feels ridiculous. And there's a million diabetes running around with pens and their purses and, you know, every other

Speaker 1 51:49
and we have, we do the same thing. We have a pen and in my son's pack that we use regularly also. So all those things. Yeah, we did. I agree, not worrying about that too much, is definitely the way to go.

Scott Benner 52:01
Even one of the concerns for like, you know, Arden is using trio now, but like, if you're using loop or another DIY, like, I used to be like, Wow, you lose this phone. You're screwed, right? Because I gotta go back to my computer to upload and now, even now, they can send the apps, like, through an email link. It's so crazy. Like somebody, you know, you can just set up. Like, you can get a note on your in your email, click on it, it loads trio on your phone. Like it's, it's awesome. Like, you know, how much better things have gotten? Have having said that? Like, how many times have you been somewhere where you don't have a signal?

Speaker 1 52:33
Yeah, a lot of times. Also we you know, just something helpful to know is that T Mobile, for example, has free five gigs of international Wi Fi or international cellular per month, and so that's been really helpful, just that way, my husband and I and our son can all have readings all the time without having to mess with E sims or anything like that. And then a lot of times we have to have him, one of us will just carry his device so that we can keep a closer eye on it, because we no longer get a signal and we don't. We're not getting alerts. We're not getting, you know, sugar mate, no more shells and those kind of things. Yeah,

Scott Benner 53:08
you know, it's funny. You just said T Mobile, which made me think of the ring from the phones, which made me think of the Devil Wears Prada. That made me think about how much I, like Anne Hathaway, that all went through my head when you said

Speaker 1 53:18
T Mobile, amazing. Amazing. I was like, advertising is working, so it

Scott Benner 53:23
really is hitting me. I heard like, doo doo, doo doo. And I was like, oh, The Devil Wears Pro. By the way, I'm not embarrassed to enjoy the Devil Wears prod. It's a great, great movie. It's a great movie. Anything I've missed, Sarah, I know you like, you have, like, a real job. You have to go back to work. So I could just keep doing this, but you may have to go somewhere. Is anything we missed that we should add into this? I

Speaker 1 53:43
don't think so. I mean, I think, yeah, you did a great job of hitting all the main points. I mean, my main motivation is just making sure that people feel like it's something that's attainable and within reach for people with diabetes, that traveling is totally something that somebody with type one diabetes, a kid with type one diabetes, can do, and that it's not overwhelming, and it's not a barrier to being able to explore the

Scott Benner 54:05
world. Well, you made me feel that way, so I assume that you did that for somebody else as well. Thank you. Excellent. If you came back on, what would you want to talk about, about the health prei piece? Yeah, can you give me, like, 60 seconds on what what that is?

Speaker 1 54:18
Yeah, well, I can tell you what I mostly deal with, which is, it doesn't completely overlap with what you are talking about. It may not be a great fit, but what I mostly do is, so I worked at Rand, which is a big Think Tank, doing AI model evaluations for national security risks for a couple of years. And with that, I obviously translates a lot into healthcare, in terms of, how do you know that a lot of these AI tools that we're using are safe. There's obviously AI that's going into these dexcoms and the OmniPods and, you know, the closed loop systems in general, and the FDA is kind of struggling, honestly, to keep up with how quickly the field is moving. And then that's kind of a small piece of you know, when you multiply that into you. AI tools that go into a healthcare system. And you know, how do you know that the information that you're getting, the recommendations that the clinicians are getting, are accurate? And because AI is what we call probabilistic, not deterministic, meaning that it there's a it will give you the same answer, maybe some of the time, but not all the time. Whereas most of the systems we're used to using in medicine, like if you put these three inputs in, you're going to get this input out. And that's not how AI works. And so it's just harder to evaluate the safety of it, because it doesn't always give you the same answer. So figuring out how to use that safely with patients, and integrate that into a hospital system and the AI products themselves, and then testing them to make sure that the software is indeed safe and how it's used regularly, actually is what you intended. That's most of what I do. I do a lot of healthcare. I have a sub stack that I write, and then I have a large physician community also that that I run, but it mostly these days focused on AI evaluation and governance. I still think

Scott Benner 55:59
that's very interesting. I don't even care if what you're talking about, though. Talking about doesn't directly apply to diabetes. I still think it's a really interesting conversation. So if you want to have it, I'd like to have it too.

Speaker 1 56:09
Okay, yeah, that'd be fun. I would love that. Okay. I mean, I think it's a really I think it's interesting, and I think for people with diabetes, actually probably does apply more, because AI will be the recommendations that you see are so personal. You know, for a lot of people, this is very abstract. In terms of, like, AI will recommend something someday in healthcare, and then you will, you know, get a response. And for people with diabetes, this is very immediate and very personal in terms of, you know, some of the AI systems, how they're prompted is to be more aggressive, and some of them, how they're prompted is to be less aggressive. And you see that in your own recommendations and how these closed loop systems

Scott Benner 56:46
work. Yeah, no kidding. I think the first time it struck me was when I asked, I think I asked Jake leach of Dexcom, like, you know, how much more can you improve the sensor wire and the blah blah? And his answer led me to believe that the improvements aren't as much in the hardware as they are in the interpretation of the information coming through the hardware. Absolutely. Yeah. And what can that thing, I don't know, surmise from what it's getting? And I was like, Oh, that's interesting. And when you talk to companies about their algorithms, and you know, like, how aggressive their insulin pumps are, and you say, like, oh, well, you're gonna have to develop one that's more it's not really develop one that's more aggressive. They just need to turn a knob and then test it enough to say that it's safe. And right?

Speaker 1 57:30
So that's exactly it, yeah. How do you test it at safe? How do you show that it's safe? And we don't really know, is the answer, right? The the what is the standard for demonstrating safety? Is not as clear as you would think it is, especially for AI since, since it's going to give you a different answer every time, yeah,

Scott Benner 57:47
that so that's what I'm interested in talking about. Okay, so hold on one second for me. Thank you very much. I appreciate you doing this very much. Today's episode of The Juicebox podcast is sponsored by the ever since 365 you can experience the ever since 365 CGM system for as low as $199 for a full year visit ever since cgm.com/juicebox for more details and eligibility, this Episode of The Juicebox podcast is sponsored by Omnipod five. Omnipod five is a tube, free, automated insulin delivery system that's been shown to significantly improve a 1c and time and range for people with type one diabetes when they've switched from daily injections, learn more and get started today at omnipod.com/juicebox of my link, you can get a free starter kit right now. Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox, us, med sponsored this episode of The Juicebox podcast. Check them out at us, med, Comm, slash Juicebox, or by calling 888-721-1514, get your free benefits check and get started today with us. Med, thank you so much for listening. I'll be back very soon with another episode of The Juicebox podcast. If you're not already subscribed or following the podcast in your favorite audio app, like Spotify or Apple podcasts, please do that now. Seriously, just to hit follow or subscribe will really help the show. If you go a little further in Apple podcasts and set it up so that it downloads all new episodes, I'll be your best friend, and if you leave a five star review, ooh, I'll probably send you a Christmas card. Would you like a Christmas card if you or a loved one is newly diagnosed with type one diabetes and you're seeking a clear, practical perspective, check out the bold beginning series on the Juicebox podcast. It's hosted by myself and Jenny Smith, an experienced diabetes educator with over 35 years of personal insight into type one our series cuts through the medical jargon and delivers stress. Forward answers to your most pressing questions, you'll gain insight from real patients and caregivers and find practical advice to help you confidently navigate life with type one. You can start your journey informed and empowered with the Juicebox podcast, the bold beginning series, and all of the collections in the Juicebox podcast are available in your audio app and@juiceboxpodcast.com in the menu. If you're looking for community around type one diabetes, check out the Juicebox podcast. Private. Facebook group Juicebox podcast, type one diabetes, but everybody is welcome. Type one, type two, gestational loved ones. It doesn't matter to me if you're impacted by diabetes and you're looking for support, comfort or community, check out Juicebox podcast, type one diabetes on Facebook. The episode you just heard was professionally edited by wrong way recording, wrong way recording.com,

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#1616 Somebody’s Always Peeing - Part 2

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio -  Radio Public, Amazon Alexa or wherever they get audio.

Monica shares her son Timothy’s type 1 diabetes journey, from diagnosis to teenage independence, opening up about fear, resilience, and finding balance as a parent learning to let go. Part 2 of 2.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Here we are back together again, friends for another episode of The Juicebox podcast.

Hey everybody. This is part two of a two part episode. So this was a longer conversation, and we split it into two parts. If you have not heard part one with Monica, you gotta go find it. It should be the episode right before this in your podcast player, I am here to tell you about juice cruise. 2026 we will be departing from Miami on June 21 2026 for a seven night trip, going to the Caribbean. That's right, we're going to leave Miami and then stop at Coco k in the Bahamas. After that, it's on to St Kitts, St Thomas and a beautiful cruise through the Virgin Islands. The first juice Cruise was awesome. The second one's going to be bigger, better and bolder. This is your opportunity to relax while making lifelong friends who have type one diabetes, expand your community and your knowledge on juice cruise 2026 learn more right now at Juicebox podcast.com/juice. Cruise at that link, you'll also find photographs from the first cruise. Nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan.

This episode of The Juicebox podcast is sponsored by the contour next gen blood glucose meter. Learn more and get started today at contour next.com/juicebox This episode is sponsored by the tandem mobi system, which is powered by tandems, newest algorithm control iq plus technology. Tandem Moby has a predictive algorithm that helps prevent highs and lows, and is now available for ages two and up. Learn more and get started today at tandem diabetes.com/juicebox this episode of The Juicebox podcast is sponsored by the twist a ID system powered by tide pool that features the twist loop algorithm, which you can target to a glucose level as low as 87 Learn more at twist.com/juicebox. That's twist with two eyes.com/juicebox. Get precision insulin delivery with a target range that you choose at twist.com/juicebox. That's t, w, i, i s t.com/juicebox.

Speaker 1 2:41
Yeah, I don't think my husband has ever heard that one. That's very interesting. That just

Scott Benner 2:46
happens, Monica, like you hear your mom and dad say something one too many times, like, I don't want to be connected to this anymore, and you don't want that to be diabetes, exactly. It's funny because you listen to adults, come on here in their late 20s, who grew up through high school with type one and went off to college, and they tell you, I wish my parents were more involved. I wish when I pushed back, that my parents wouldn't have given up. But that's hindsight. If you could go back and ask the 17 year old them, they'd say, my mom's an idiot, my dad's an adult. They don't know what they're talking about. They're bugging me. Everything's hindsight. When you hear somebody say something thoughtful, it's almost always in hindsight. So you know, the problem is, you have to deal now and in now with the person you're speaking to, and that's why I think it's always important to keep a really long view of what you're doing, like you're not trying to win the day. You're trying to make sure that in the future, you've raised a person who wants willingly to take care of themselves.

Speaker 1 3:46
That's all right. And I think that that that's really a complicated thing that move, you know, moves to a bigger point is the worrying too much about the future or obsessing too much about the past. That's where you know, you can be depressed about what you didn't do, and you could be anxious about what might happen. And they say mindfulness, you gotta, gotta concentrate on the current moment. But to count, you know, counteracting that just as you're saying, it is the current moment. But what are these current moments leading up to how is this going to play out in the future? You know what you know? What are the possible ramifications? You know, both health wise and relationship wise. So I think it's an interesting and complicated place to be, because you do need to be tactical, but then also know what I'm doing now. I need to get comfortable with the fact that the end goal is independent adult, and this is a long game.

Scott Benner 4:44
Yeah, no, I understand. I mean, honestly, the way you talked about what you enjoyed, about the nutrition, conversations about like, hey, we need to think more about the building blocks that we're putting in, this is really the same thing, right, right. You're putting in information you don't need to see. I. Mean, honestly, this works well, with my example about the vitamin D, like, you take vitamin D today, you don't wake up tomorrow and go, ha, I did it. I'm Superman, right? But you do have better outcomes over years and years and years. And the same thing goes, I think, with this stuff, like, it's not as easy just to turn to your kid and go, you have to Pre-Bolus because you have to. And now just start doing it. And because that's not how it's going to work. But if you get the idea in there, and you build it up a little bit, you add more and more building blocks of ideas and thoughts without pushing somebody away, right like so that's a very slow layering, because if you dump too much on them at once, most people are going to rebel. They're going to be some people who are rule followers or want to, you know, they're pleasers, maybe, and you'll get them to just do it, but most people are gonna just go like, eh, don't tell me what to do, and then you waste it so it's very slow. You're almost dropping seeds, you know what I mean, just hoping that they take root and sprout, and if they don't, you throw some more down. I'm telling you, I think the vibe here is, if you're raising kids in today's society, you have up until their mid 20s to impact them, right? And then after that, if you're lucky, you've got an adult on your hands who, if they have questions, will actually come back and ask you, or will go find out on their own. And if you're unlucky, you're gonna end up with somebody who's not gonna take care of themselves. But I don't know that just beating them over the head is the way to that, especially when it's between a parent a child. Now, have I heard? Listen, I'm against people trying to scare you into taking care of yourself, but I'd also be lying if I didn't tell you that people have come on this podcast and talked about being in dire health situations for many years, and that somebody, usually a doctor scared them straight, and it actually worked on them. Now I don't mean that you should try that on a 12 year old. There is a world where you might do everything right or do everything wrong, and your kid ends up 35 years old with an 11 a, 1c, and one day, some doctor says to him, are you interested in seeing for the rest of your life? And it gets to them, my brother has type two diabetes. It's in a much different situation than before, and he related that conversation to me. Our brother's a bright guy, thoughtfully, cares about himself all that stuff, but it was a doctor who said to him, like, you want to be able to, like, keep your legs and your feet and everything and like, he scared the out of him, and that made my brother call me and go, Hey, what am I not doing I should be doing exactly.

Speaker 1 7:21
Yeah. What are the things that you may have mentioned to me before that you know that now they're willing to listen and

Scott Benner 7:28
you have that podcast. What is it? You tell people on that thing?

Speaker 1 7:31
What is it? Yeah, what is that? Did you have that series for type two

Scott Benner 7:36
email that over to me please? Yeah.

Speaker 1 7:38
What's that? It's the, it's the when I had this is again, bigger picture. You know, Mel Robbins has her let them theory book and all of that. Is it that we look and we think we want to help people, but we can't. You know, you can't control someone else, nor get them to change. A person only changes when they want to change. So as much as we want to give people information about diabetes, about nutrition, all of that, right, helping people that want to be helped. That's the important part. If that's

Scott Benner 8:08
not how it worked, I could just run downstairs, grab Arden by the shoulders and start yelling tag lines to her from the podcast. She'd be okay in an hour and a half. Exactly, exactly. I mean, imagine this like I know by the way, Monica, let me say while people are listening. You're a big supporter of what I do. I really appreciate it. Thank you, and it means a lot to me. And at the same time, like, you'll know this when I tell you, like, if every one of the 67,000 Facebook member group members saw a post from somebody who was like, oh my god, I listened to blah, blah, blah, and it saved my life, which happens every day, like, you know, multiple times a day, somebody is going to write a post to me to say, hey, I really appreciate what you're doing, what you did. Here's the thing I heard that really helped me. And they'll go to the TR you can see they're trying to help other people. They go to the trouble of laying out where they were, what they did, what helped them, what they think might help somebody else. If it was that easy, that would take one of those posts, all of those people would see it and go, Oh, you know what? I can listen to 20 hours of a podcast to figure that out. But that doesn't happen. It's a daily slog of waking up, scanning that group and looking for the people who, on that day, decided I have had enough, I got to figure this out, and then being, being there to meet them with information that will

Speaker 1 9:24
help them, right? And that is something that I struggle with in in this space, and then also in others. You know, other areas of my life, when you are you maybe repeatedly are suggesting things to someone, and you realize they aren't ready to change. They don't, you know they, they, they, it's the lead the horse to water, and there they are standing next to the water. And we, you and I say water a little differently, but I didn't mean to be repeating water on purpose. It's trying to remind yourself that there are those people that want to be helped, and we can give them that information because. Yeah, I get really frustrated with the face, with the Facebook group, with people saying, Yeah, I don't. I don't have time for that. I don't, you know, that's not the way that I can learn. Like, I said I had never listened to a podcast before. I don't. I can't, for the life of me, think of who it was that had suggested this. I can't. I tried tracking down, like, was it the CDE? Somebody said Juicebox podcast, and I can't figure out who it was. You know, who it was. And I wanted to before coming on here, but I didn't figure it out. However, first podcast that I listened to, I don't like YouTube videos. I'm a reader. I've always been a reader. I don't love Facebook, you know, you know, reading on there. I want credible sources of information. First podcast that I listen to, I do listen to others now, you know, I was listening to pretty early on the episode that you did that was the 411 that was the equivalent, then, of Isabel's lists and things. And it was you talking through listen to this one, this one, this one. And I did the, you know, the Netflix binge type of, type of thing in a podcast way, and went through those episodes and then just continued to want to listen to more of that, even though I hadn't listened to a podcast. And I would tell you, I listen, you know, I learn much better from reading than I do from listening, but all of that, it was a different way of me taking in the information, but it was so helpful, and it turned me into a podcast listener, which I hadn't expected, because I didn't think that that was something that I would enjoy. Yeah,

Scott Benner 11:34
I'm glad, I'm glad you found it, and I'm glad you found other stuff that you enjoy, too. I think it's a great way to experience other people's ideas almost passively. You don't need to be sitting staring at it to hear it. I think it's awesome. I'm glad it found you and that it was helpful. You talked me, by the way, into making another kind of explainer about why you'd want to listen to certain series. Like, I can get lost sometimes and just think, like, I've said that already. I don't need to say it again. But I think that there are always new people every day showing up in the group takes on probably 100 new people a day at this point. So it's always incumbent upon me to to find those people and let them know where they can begin.

Speaker 1 12:13
True. True. I do. I do agree with what some people have said too, when we've had, had had people discussing it back and forth on the Facebook page is that there do seem to be people that are, they really are into Facebook, and they're not. They're like, No, you're not going to get me listening to a podcast. I just want and that's I think that that's hard. I think it's frustrating. It's really frustrating that they'd rather go back and forth with posts, and there's going to be a lot of noise. They might say, okay, you know, I will go to the link that Nico just posted about that episode, but I can understand that sometimes, with the overwhelm, they think podcast I, you know, now I have to download something and listen to something again. That's it is. It's a tricky thing because I see so many people that do want help, but then they say, Yeah, I can't do that.

Scott Benner 13:01
I'm I would also tell you that I think that my data tells me that they do eventually make it. It just takes some people longer than others to dive in, and so they do eventually get back to it. I've had people send me emails. They just hate me, you know? Yeah, I'll get another email from them six months later and they'll just say, Hey, I'm really sorry about that last email I sent, but I did find my way to that information now, and really has helped me, and I appreciate it. And, you know, sorry again for, you know, calling you those names, it's okay with me. I didn't, I didn't take it to heart. Don't worry about it. The brand new twist insulin pump offers peace of mind with unmatched personalization and allows you to target a glucose level as low as 87 there are more reasons why you might be interested in checking out twist, but just in case that one got you twist.com/juicebox, that's twist with two eyes.com/juicebox. You can target glucose levels between 87 and 180 it's completely up to you. In addition to precision insulin delivery that's made possible by twist design, twist also offers you the ability to edit your carb entries even after you've bolused. This gives the twist loop algorithm the best information to make its decisions with, and the twist loop algorithm lives on the pump, so you don't have to stay next to your phone for it to do its job. Twist is now available in select areas, so if you'd like to learn more or get on the wait list, go to twist.com/juicebox. That's twist with two eyes.com/juicebox. Get on the twist wait list and be notified as soon as it's available in your area. Links in the show notes. Links at Juicebox podcast.com This episode is sponsored by tandem Diabetes Care, and today I'm going to tell you about tandems, newest pump and algorithm, the tandem mobi system with control iq plus technology features auto Bolus, which can cover missed meals. Analysis and help prevent hyperglycemia. It has a dedicated sleep activity setting and is controlled from your personal iPhone. Tandem will help you to check your benefits today through my link, tandem diabetes.com/juicebox, this is going to help you to get started with tandem, smallest pump yet that's powered by its best algorithm ever control iq plus technology helps to keep blood sugars in range by predicting glucose levels 30 minutes ahead, and it adjusts insulin accordingly. You can wear the tandem Moby in a number of ways. Wear it on body with a patch like adhesive sleeve that is sold separately. Clip it discreetly to your clothing or slip it into your pocket head now to my link, tandem, diabetes.com/juicebox, to check out your benefits and get started today.

Speaker 1 15:48
No, no, no. Well, I think it was maybe it was no, maybe a day or two ago that you were just talking about that, that on that. I mean, this is, this is something that is really surreal to me when episodes are aired and you realize what time they must have been recorded, yeah, because there was one episode. And you said, Yeah, you know, don't take a look at any of your investments. I bet you'll know what day it is when you're listening to this stuff like that that you've you realize what's, you know, what was going on. But it was a day or two ago, and you were talking about the people that hate listen and you know, they're just, you know, they come back every day. I hate this guy, but I but I can't stop listening. And how, how much you you enjoyed the fact that, despite the fact that they cannot stand you, that they they're back for more.

Scott Benner 16:31
There's a great scene in the in the Howard Stern movie, the producer from NBC comes in and he says, we have, you know, we have the listener feedback about the Howard Stern Show. And he says something like, people who love him listen for an average of 45 minutes, and people who hate him listen for an average of four hours exactly, or something. It's something like that. I don't know the exact words of it, so, you know, there's always going to be that. But there was a girl on recently. It's called modern fairy tale. The episode she said, Yes, she was really awesome, and young, in her mid 20s, had grown up through she's her third generation of type one in her family. Her grandfather had great outcomes for no good reason. Her father thought, oh, that's what you do. You don't really need to do anything. It all just works out. Except he passed very early. She was probably on her way to following her dad's footsteps. Somebody put her in onto the podcast. She starts listening to it, and then she gets, I forget why. She gets mad at me for a reason, or she decides that it's not for people who are MDI or something. She makes some leap, but she kept listening. She was hate listening. At that point, she was mad, and she was listening. And then something got said. She was out shopping, she heard me say something, and her brain went, Oh, I could do that. And then she just did it. And now, you know, a couple of years later, she's a guest on the show talking about all the awesome success she has in her life,

Speaker 1 17:52
right, right? And yep, and it was, it was that she, because I just did listen to it. And I know that you listen to things before you post them sometimes too. But I it was, it was that she said, This doesn't relate to me. It's, it's, it's MDI. And she was listening anyway. But she was, she, you know, described as kind of bitter that this all this stuff, and it's about pumps. And then she was like, wait a minute, this does apply. This does this does work.

Scott Benner 18:16
I tell people all the time, MDI and pumping are exactly the same. You can't change your basal. You know, you have to shoot more if you want a Bolus more, and you can't split a Bolus. But that's the extent of the difference between MDI and pumping. Now, you know algorithms are different, obviously, but yeah, if you can do it with insulin, you can mimic it with MDI,

Speaker 1 18:37
right? We did really well on with, with MDI, and then with, and then with that, with MDI, dash, Omnipod, five. We haven't. We've been steady with our good results that whole time. What's been different is the ways that I put in effort, and what you know, what you know, what I'm looking at, and the more that we've learned about the inputs, meaning the combination of the inputs of the food and then the activity related to it. I agree with you so much that it's it's time, you know, it's timing and amount of the insulin, and then also it's taking a look at the type of foods that you're eating and how to strategize for how that is going to be processed by your boy, by your body, or your type

Scott Benner 19:23
ones body. I don't know. Have you ever seen the movie Moneyball? Are you a baseball fan? You know

Speaker 1 19:28
what my my husband just was talking about this. This is a brad the Brad

Scott Benner 19:33
Pitt movie. Brad Pitt, yeah, there's an awesome scene in Moneyball where they decide to go get this beat up catcher and have him play first base, the general manager, and one of the one of the coaches, goes, sits down in his living room, and he says, hey, you know, we'd like to have you come out and play for the team. He goes, You know, I don't think I can really throw the ball anymore from, you know, from home to second. He goes, That doesn't matter. You're not playing catcher for me. You're going to play first base. And he says, I've never played. At first base, and the general manager goes, doesn't matter. It's incredibly easy. We'll teach you. And he looks at the coach, he goes, tell him wash. And the coach goes, it's incredibly difficult. And so, like, I think that about diabetes a little bit, it is just timing an amount, right? And once you understand all of it and have the tools, it is pretty easy. And but if you don't have those things, it is incredibly difficult. I think that's where the podcast helps people, not differently than the building blocks. Idea about nutrition or the building blocks. Idea about teaching somebody something, you slowly hear things, they build up over time, and then one day, you just have the full force of having taken your vitamin D every day and you get the benefit of it, you don't even know what's happening to you. You just have that benefit now. And I think that's what listening does. It gives you tools and ideas about insulin and living with diabetes and a lot more. Not that humbly, I would say, I think there's more to the podcast and all that. And then one day, you'll just have better outcomes. You might not even know why they're happening. You just suddenly have built up those building blocks almost unknowingly, and now you have more information in your head when it comes time to make a decision. Contour, next.com/juicebox that's the link you'll use to find out more about the contour. Next Gen blood glucose meter. When you get there, there's a little bit at the top you can click right on blood glucose monitoring. I'll do it with you. Go to meters, click on any of the meters, I'll click on the Next Gen, and you're going to get more information. It's easy to use and highly accurate. Smart light provides a simple understanding of your blood glucose levels. And of course, with Second Chance sampling technology, you can save money with fewer wasted test strips, as if all that wasn't enough, the contour next gen also has a compatible app for an easy way to share and see your blood glucose results. Contour next.com/juicebox and if you scroll down at that link, you're going to see things like a Buy Now button. You could register your meter after you purchase it. Or what is this? Download a coupon. Oh, receive a free contour next gen blood glucose meter. Do tell contour next.com/juicebox head over there. Now get the same accurate and reliable meter that we use.

Speaker 1 22:18
That's precisely one of, one of the points that I, that I did, did want to make, is, is that Timothy and I, again, before, you know, before different technologies even. But I wrote down here, found the podcast in January 2021, so we were diagnosed in October of 2020, so I did go, you know, I did, I did go for a while without the podcast, and I had figured out a lot of these things. So one could say, well, why are you listening almost daily to diabetes podcast? And why are you going through all of this? It is that the repetition of the of the ideas, finding out, there's always more to learn, there's all there's always interesting things to you know, to find out about ways that people deal with things. Even if you think you know a lot, there's so much more. And honestly, it's the conversations with such interesting people about all kinds of things. It's kind of little like Seinfeld. Sometimes the show is the show about nothing, you know. And that's not insulting you in any way, you know. It's just that it's entered, it is entertaining. And there was always something that I take away from someone and and their life story. And, you know, everybody comes on and says, you know, I don't have anything to say. And of of course, they do. And there's, there was always something that you can relate to, or that you know someone that could relate to. And again, lot of it is not about diabetes, and I know that that's probably going to have more people think, well, I don't have time for that stuff. But in the lessons that that I found, it's about attitude, it's about your approach to things. It's about how to deal with other people, about relationships. There are so many things that are woven through the conversation conversations that it really is about a lot more than diabetes. My husband calls it diabetes radio, and I keep talking to him about the fact that it's really not just about diabetes, because it isn't he would probably like it. I think he would

Scott Benner 24:27
just a good podcast, not like about diabetes. And I think that that's why it, it succeeds where it is, because where other, you know, offerings maybe don't get so wide. There is an entertainment factor to it. It isn't cold and calculated. It isn't buttoned up and stuffy, and yet, you know, the things you hear will definitely help you. And I couldn't agree with you more. Like I feel like I've said this a couple of times, but I'm happy to say it again. When I was a kid in the 90s, I listened to Howard Stern interview a porn star. Yeah, and he never asked her about being in porn one time, right? And she was so interesting, and her life was so interesting, and her ideas and her thoughts and her fears and everything she talked about, I just was ensorcelled by like, I really was just, I don't know, riveted by her conversation, and then I look back on it, I wish I knew who he was talking to, because I'd go listen to it again if I could. But you look back on it, and you can hear him expertly picking through her life, right? And you don't realize it's happening while it's happening, and she doesn't realize it's happening while it's happening, and she doesn't know how much she's relating to other people. I think I make a conversational podcast that happens to only talk to people who have diabetes or a kid with diabetes,

Unknown Speaker 25:49
right? And I agree, I agree,

Scott Benner 25:51
yeah, but I could easily get 10 people on here who don't have the thing to do with diabetes. And I guarantee you, I could interview them, talk to them about life, and you wouldn't unsubscribe. You'd be like, Oh, those were good conversations.

Speaker 1 26:06
That's absolutely what I'm saying. And, and then with the different series that you had, you've had, I mean, there's the thyroid series and, you know, and then now the nutrition series, and that's, that's kind of proving that too, is, is that, yes, these things can relate to people with diabetes, and are important however they you know this, you know, this is general information. This is a lot, you know, this is a lot of stuff that's applicable. A lot of this stuff, like with the talking about about social media and the way people respond, and all of that. It's, you know, it is, it is absolutely true. And it's, you know, it's important information for people to think about is, is that the, you know, when we talk about how people just want to be on a side, and then you, when you look at, when you when you've talked about the comparing how with the chameleon Facebook group and your Facebook group, and you look and you think, you know, we're all so different, and we're dealing with different things And and, no, no,

Scott Benner 27:00
it's all exactly the same. Exactly. There aren't people with diabetes on Facebook who are unpleasant. There are people who are unpleasant. Some of them are on Facebook. Some of them are talking about chameleons and some of them are talking about diabetes, like the arguments and the hot takes and the perspectives, they're all exactly the same. From topic to topic to topic. It doesn't make any it doesn't make any difference, right, right? A woman put a post up the other day. I wish I remembered her name, and she was just thanking me for an episode that went up last week called, I think it's called sorry a or something like that. And she goes on to say, like, there are so many valuable life lessons in this conversation, yes, like, Forget diabetes, they're in there. I'm touched by that, like I and I know it's me talking about me. So some people will think it sounds distasteful to talk about, but I mean what? I don't know what else I'm supposed to do when I wrote my book about being a stay at home dad. Again, I don't know how good of a writer I am, or how good of a book that is, or anything else, but I can tell you that when it was over, the publisher came to me and said, I don't think I could have paid a professional writer to do the job you just did. That entire transcript that you gave us is full of common sense, life lessons explained simply. She goes, it's a roadmap for living a better life. I know people usually brand that or they call it stuff, and then they, you know, they try to sell it to you. It's funny. I just had a long conversation this morning with a contemporary of mine, and where we were just talking about the difficulties of getting around the platforms and how they want creators to pay money to for their stuff to be seen. It's how Facebook set up. It's how it's how they're all set up right now. Like, if you're not a creator, you don't know this, but when I make a post, the next screen that pops up in front of me asks me to pay you. They pay pay them so that people will say it, ah. And so I don't do that, but then they limit who sees your stuff that's on all of the platforms. Facebook does it, Instagram does it, Tiktok does it, YouTube doesn't. But I don't put video up. I only like, I'm only like, basically like, you know, repurposing my audio on YouTube, which is not how people listen to podcasts. It's not really important, right? But no, yeah, I'll make a post on Facebook, and then it will ask me how much I want to spend to make sure people see it. And then it will tell me, if I spend this much, it'll show it to this many people, and if I shouldn't that much, it'll show it to this many people. So all the stuff you're being delivered on Facebook, if you're seeing it, you either really love that thing and you are interacting with it constantly, or you're somebody is paying to shove it in your face, right? So we were talking about that, and during that conversation, she said to me, like, Hey, you could probably make maybe do one of your episodes a week in video and put it on YouTube, maybe people would be interested in that. And I was like, Well, it's a lot of money and editing and time, and I don't know, I'd have to find people who were willing to be videoed while we were doing it. Like, I don't know if I could really make it all happen. I already have a pretty significant cost paying my editor for audio and stuff like that. And so we were talking all through that, and she said, Well, you. Probably, you know, if it got popular, you'd make money on YouTube. And I stopped her, and I was like, I don't really care about that. Yeah. And she's like, well, you know, you got to make money. I said, I make money. I'm okay. Like, I pay my bills, I save money, I'm good. My concern is that, I know you don't like me saying this, but my concern is that I'm 53 I don't, I don't like you saying that. I've already kept this thing going for 11 years, right? I mean, the honest truth is, like, if, if I made a podcast for 20 years, that would be pretty uncommon, like a popular podcast for that. So let's say I can accomplish that. Let's say I can make this for nine more seasons till I'm 62, years old. Oh,

Unknown Speaker 30:35
don't say that. I need to hear that out

Scott Benner 30:37
loud. Okay, right, right. So, like, let's say I can, I can accomplish that. I have a finite number of people I can help, and it's not grandiose, and I don't have a god complex. But trust me, I said to her, if you were me, if I sent every note that I receive every day to you every time I get one, if I just emailed it to your text it I said you'd be crying by the end of the day, and that happens to me all day long. 24/7, and it's a response. It now it feels like a responsibility. The podcast feels like a public trust to me, like I just want to get it to more people, because there'll be a day where I can't get it to anybody. And if we go back to the reason I started writing that blog in 2007 the thought in my head when I started writing that blog was is very simple. I started it because I wanted people to understand type one diabetes, and I realized that they didn't. I kept it going after reading an article about a man who passed out at a train station parking lot, a commuter train station parking lot, they kicked him off the train for being drunk. He was found early morning by commuters laying face down in stones. People passed by him. They mocked him. They made fun of him for being a drunk. And one woman recognizes, I think my sister or my brother has type one diabetes, and this looks like low blood sugar, and she stops and saves this guy's life, right? And I thought, I wonder if I could write enough stuff and put it online, it'll reach a person who might find my daughter laying face down somewhere. One day, I'm gonna write this blog and see how I make myself cry. It's late in the afternoon. This isn't good, Monica, I gotta get my headshots done in a couple hours. I don't need to have red eyes. I just can't believe I said headshots in the middle of this touching story. I know me either. Nevertheless, that is what I'm doing tonight. And so, like, maybe I can write a blog that will reach a person and educate them so they can save my daughter one day. It's how I thought about it. And now, at the end of this some I'm almost 20 years into it now, right? Like, I started in 2007 right? Is 2025, and now I'm looking at the back end of my life, at least professionally, and I'm like, I don't know if I reached enough people to find that person that's going to help her. But more importantly, now, the way I think about it is, I don't know if I've put enough into the world that when she's ready to go find it, if it's going to be there, because the biggest travesty I can imagine is that the daughter of the guy making this podcast, because she's the daughter of the guy making the podcast, doesn't listen to him, and then one day, decides to go to try to find it, and can't even find it. I'm trying to find a way to keep this all alive for my daughter and for whoever else is benefits from it on the way. But hey, spoiler alert, I'm just making this podcast for my daughter. The rest of you are benefiting from it. That's awesome. I need the last thing for this podcast to do is to find Arden in a bad moment and pick her up. That's what I'm trying to do. So anyway, that's a lot of high minded bull, right there?

Speaker 2 33:41
No, but I is, what is what you're saying, that she'd go

Speaker 1 33:46
looking for it, but she'd go looking for it in in a voice other than your voice, meaning she wouldn't look for the

Scott Benner 33:51
maybe, yeah, Monica, maybe

Speaker 1 33:55
you're saying you she, you need to educate enough of us so that, though, that those of us and our descendants, obviously, because since I'm your age, I all I will also be gone. Well, it will be done. We'll be gone. But enough of the, enough of the, the listeners and the followers will have created their own entities. Like you know is, are you thinking of it that way?

Scott Benner 34:19
Because, yeah, with any luck, and I do think it's going this way, Arden will know how to take care of

Speaker 1 34:24
herself. Yeah, I think, I think you know that she already does. Yeah, yeah, no, no. I know a lot. She knows a lot, and and I know your fear is apparent, as apparent is that she's going to turn around and have all of these unanswered questions. But you know that she's again, like you said, the little, little breadcrumbs, little dribs and drabs, the little things over all the years. You know that she's got your, she's, she's got your, your philosophy, and the, you know, the way that you look at all of these things, even if she doesn't have all, you know, all of the little ninja tricks that you might,

Scott Benner 34:56
I agree, it will surprise me if Arden ever has an A one. See that's higher than six in the sixes. Like, that'll surprise me, right? So yes and no, like, but a little bit yes, my daughter's gonna get older. She's gonna age. She's gonna end up in an ER one day. She's gonna, and I'm not gonna be with her, she's gonna end up in an endocrinologist. Like, she's got a great endocrinologist now, but that lady's older, like, she she's not gonna be around forever. Like, she's gonna have to go find another endo someday. I have the really like, I don't know what to call it, I want to make sure that people understand I feel very blessed about it and grateful, but I have a really far and wide reach, and there are plenty of we talked about it today on the call I was on, there are plenty of nurse practitioners out there that sit in your room with you while you're talking to your Endo, and they hear you getting bad information, and they grab you in the hall, and they go, let me. Let me help you out. And they grab you in the hallway, and they go, Juicebox Podcast. I'm trying to seed the world with those people, not people who are mimicking what I'm saying, right? People who understand that it's timing and amount. That's who I want out in the world. People who understand that if you're tired, you might be anemic, people who understand, if your hair is falling out, that your thyroid is probably not regulated Well, like I want people to understand the things that I've come to learn they don't understand, right? Because my kids going to ask them a question one day, and I'm going to be too old to help her, right? And one of you sons of bitches better know the right answer.

Speaker 1 36:21
I have to say, I think that you, you must be feeling bad for Rob and think that he needs to be paid more, because I think that you've, you're giving him a lot of work during this episode, actually,

Scott Benner 36:32
that'll make him laugh. Okay, you're a good point. Good. We're done, Monica, is that what you're

Speaker 1 36:36
saying? It's over. No, no, no, no. But you

Scott Benner 36:40
go ahead, I'll tell you something like this. Is also another consideration. We've been talking for an hour and 20 minutes. Rob will do a great edit on it. He'll probably take 10 minutes of noise and gaps out and stuff like that. It'll go down to around 100 you know, about an hour 10. He'll put in the ads. He'll do all the good work, etc. But if it was me, I'm more of a two hour, three hour podcast person, I'd keep going with everybody, but I don't think anybody cares. Like, I don't think the people listening are looking for 15 hours worth of podcasts every week, but for my personal listening, I prefer to listen to longer podcasts, right? Yeah, and we're all down to like, now it's all one hour because of editing costs, or it's 10 minutes, because that's what YouTube wants. I just think, talk till you're done talking, and then those who like it will listen to it, and those who don't will stop. At some point. It's all right with me. The reason I put five episodes out a week is because I don't think you're gonna wanna listen to all of them. And I say to myself, imagine if I had five episodes. I think they're all good, but they're not all for you, and I only put them out on Mondays. Well, that's five weeks of a podcast where you might only see one episode you're interested in. I want to give you five days and then let you say, hey, you know what I'm going to listen to Tuesday and Friday, and maybe I'll maybe I'll check out Wednesday on the weekend. But I don't give a shit about Monday to your husband's point, it is diabetes radio, to me, because I think there should always be something new being broadcasted, in case you want to turn it on and listen to it,

Speaker 1 38:09
right? That's how, in that sense, right? And what he's thinking is, is that I'm I'm long, I'm listening to a podcast, you know? I download this and start listening, and it's discussion about dosing of insulin. 24/7, that's what he doesn't understand. He does not understand that. You know, he likes smart lists. And he, you know, I said it's it, honestly, it's a lot more like smart list than you than you would think, yeah,

Scott Benner 38:34
no, it's very, I mean, this is completely conversational in my head. I'll tell you something. This will sound, I'll sound like an asshole for a second. I don't mind see and you're paying Rob again. All right, Rob, hang in there. Rob. I was listening to smart list one day, and they were talking about something that we had kind of talked about on this podcast. And I thought, Oh, I handled this conversation better than they did. Not to say they don't have a good podcast, but I've heard them, and thought I did a better job on that. Or, like, I think mine's more conversational than this one ended up being or more open minded. Like, not pre I'm not calling out smart list. Like, I also think, by the way, if you have not watched the HBO documentary on the Smart List podcast, you're missing out because it is, if you like watching people be mean to each other who are friends. It is very, very funny. Oh,

Speaker 1 39:19
and I have to tell him he's big fans of all especially will he loves Will Arnett, he loves all of them. But

Scott Benner 39:25
you tell your husband to go on to max and watch that. It's just, I think it's six parts. It's very well done. It's hilarious. But also, you know, I mean, like I said, I grew up listening to Howard Stern like, I want to turn my radio on at six in the morning, and I don't want him to be done till I go to lunch. I want five hours of that. That's how I like listening to things. But I like hearing people talking who I'm acquainted with. I will turn talking on in the car more often than music. That's just sort of my vibe. I listen to podcasts that I don't even agree with the host on. Be like, oh, that's an interesting topic. And like, I know. Don't really agree with this person's perspective, but I'd still like to listen to this, or they have on somebody who I'm interested in, and I think, well, I don't like them, but I do want to hear what that person has to say. Like, I'm not a person who's like, I can't listen to this because I don't like that guy's politics, or I don't like what he said about this or that, or the car they drive, or, like, I don't care about anything. Like, I just want to hear what you're saying. If it makes sense to me, it makes sense to me. I think it's possible the closest thing you have to Howard Stern right now is a comedian named Tim Dylan, and his YouTube he is trying to make socially relevant content that is so biting and sarcastic that while you're listening to it, I guarantee you won't know if he's kidding or not. I think that's an interesting way to try to talk to people about the world. Wait Anyway, like I don't hear every one of his episodes, but when I see him, I'll stop and listen for a minute to see what he's doing. Yeah, you know,

Speaker 1 40:49
I'll put it on as long as, as long as I'm caught up. Yeah,

Scott Benner 40:53
don't, don't. If you start listening to other stuff instead of me, I'm in trouble.

Speaker 1 40:57
Yeah? No, no, no. Subscribe and download. All of you. Thank you. Subscribe and

Scott Benner 41:01
download. Please follow in a podcast app. Set up auto downloads in your apple. I mean, if you want to help me follow an apple podcast and make sure auto downloads are on and then listen to this, listen to the show. That's the biggest way

Speaker 1 41:13
to help. Yep, nope. And that's you know that that's what we keep doing. We'll keep getting out there. Get the get the downloads. My plight. She does. I do. I do. I know pictures for the algorithm.

Scott Benner 41:25
Here's the business model. Monica, I wake up and think about how to try to help you and your son, Omnipod, Dexcom. Ever since they pay me to do that. Now they don't really. They pay me for ads. They buy the ads because you guys click on the ads, and they get a reasonable percentage of you looking seriously at their devices. That's what they want, right? So as long as I'm delivering those clicks to them, they don't care what we talk about on this podcast, right? Like this, we could get on here and talk about Spider Man movies for 50 years, if you guys were still clicking on a, you know, an ad for, you know, touch by type one, then that would all be fine. And so that's the I take their money to make the content for you, and that's so that I don't have to take your money to make the content. Because the other, the only alternative, other alternative is, is to charge you guys for the podcast. By the way, not everybody would do that. I wouldn't make a living off it, so I wouldn't be able to actually make the podcast. And a lot of people who could use the information might get priced out of it, and I don't want that either. So it's just a very simple business model. I make content people listen to. Enough of you guys click on the links, click through, and that's why they buy the ads. They're also good people in a lot of those companies, like I as an example, the circle group that I have set up is being funded by an advertiser who does not want their name on it and does not want credit for it. They just want to give me a chance to see if I can make it work for you. It's very cool. That's a very trust me. Yeah, that's awesome. There's not a lot of companies. I'll give you clarity. That group cost me about $5,000 a year to run. There is a company who just wrote a check for $5,000 and said, Here, go see if you can make something that will help people with diabetes with this. They don't want credit, they don't want ads, they don't want their name on it. They're just trying to help. They're just That's it, and as long as you guys use it and enjoy it and it's valuable for you, they'll keep paying for it. And the alternative to that is that most of those private groups charge people between 25 and $50 a month to be members, right, right? And I'm saying, just take it for free. And even knowing, by the way, that if I got it set up and running and it was super popular, I could just charge you for it, not take their money, and I could probably make a lot more money on it. I'm not even trying to make. I don't ask them for $1 more than it costs me. I said, Can you please cover this? This is what it'll cost. They wrote a check. To be perfectly honest with you, I forgot that I have to pay taxes on the five grand they gave me. So I'm now, oh, don't do that. No, I'm paying the difference. I think it's a thing worth looking at. It could be really great for you guys. And if it works out, great, and if it doesn't, I'll put my head down and say it didn't work out, but, like, I'm giving it a shot, and I found somebody to support that. So anyway, you guys are being supported by a lot of diabetes device companies and other companies that you know they want your business. I'm not gonna lie to you, but they're also supporting this podcast because they know how much it helps people, right, right? Not just because it creates clicks.

Speaker 1 44:20
That is a great story, and the fact that they don't want credit for it, that's, you know, that's something that that really says something is that they believe in this. And they're saying, Hey, we don't, you know, we're not, we're not going to try to get a pat on the back for this. We just know it's the right thing to do, and it's what we want to do at this time. But you know, really, really, that that that also does speak to that their belief in your ability to continue to grow the community, and that they know that you know, if you've got this idea that there, there's something to investigate here,

Scott Benner 44:52
I appreciate that, and I agree, and that they've said that much to me, that's absolutely true. And they said, look, we've seen you help people in other avenues. Because this sounds reasonable to us, we think you could probably help people here too. Like, here, take some money and go see what you can figure out. And so, like, that's what I'm doing now. I'm going very slow at it, because I'm still learning the space as well, but I would tell you, like, to me, it's a much better version of Facebook.

Speaker 1 45:17
You know, as I said before, I am not a fan of Facebook. And I don't, you know, I go on it and I go, you know, I go in, and I can only do small doses of trying to help some people in the group. And I feel overwhelmed. I, you know, I wish there were different, and again, different channels and things like that, and this circle community, I think I when I look at the Facebook group, I have always wanted there to be a spot where you could clearly go and discuss the recent episodes, that you could talk about the guests, and ask if they're there, all that kind of stuff. But you try to post about an episode, and it gets it gets lost. And so this is, you know, this is becoming more and more of an anti Facebook discussion, but it's true, we're not able to see what we want to see. We can't organize things the way we want to organize that because I, you know, I love talking about the specific episodes, and that was one thing that and my husband's always like this, as soon as you lay down your head on the pillow, and all of a sudden I've got admin that I need to talk about. But in closing, I do have to publicly say, say thank you to you, because I have a dear friend, I guess they would say across the pond in England, Sarah. And she was her, she is Mom of poppy, who you interviewed back I think maybe it was March or so, but I wouldn't have become friends with her if I hadn't seen her post on the Facebook site. And then I probably wasn't supposed to just message her privately, but I did. We've become good friends. And we talk, you know, we talk on on WhatsApp, or you know, or you know, voice to voice every once in a while, and we love to discuss, did you hear the episode? What's you know? What do you think about those? What did she just say on that? I can't believe, you know, we love going back and forth, and I would love more people to be able to talk about the episodes, and I'm hoping the circle group can eventually.

Scott Benner 47:08
It will be, I think, and but I also think it's a slow build. It's going to take a it's going to be a bit of a heavy lift, and it's going to take a long time. The one thing I'm not anti Facebook group. I love that Facebook group. I think it's awesome.

Speaker 1 47:18
I'm overwhelmed by it. I really am. Because, again, you know how you saying you've got the helper mentality and all that. And I look, there's so much here, and what did I miss? And, you know, I

Scott Benner 47:27
can't think like that, Monica, you can't, you can't manage that and think that way. It's, it's all very like, whatever I can do, I can do whatever I see, I see, you can't put it on you to go find more or to do more. Yeah, it's all out there, and it gives you access to, I'm telling you, I love Facebook, and Facebook gives you the opportunity to get more new followers more frequently, and you know, and you're never gonna, and most people just, you know, they go the Facebook's their go to. So to get them to even leave an app, to go to another app is difficult, but it's there. Hopefully people will, will go find it, enjoy it. Okay, now we are gonna have to go where Rob's gonna like, he's gonna call you for $20

Speaker 1 48:04
well, that that, and you've got to go powder your nose for your headshot. I do. So I

Scott Benner 48:08
just want to let people know that I was asked for headshots by the people who are taking me for children with diabetes. I need headshots for the cruise. And I need, I

Speaker 1 48:18
was gonna say it was about the crew. About the cruise is they're going to have those, they're going to have glossy flyers that they're handing out. Yes, they're going to they're going to embark, and they're going to be handed the glossy flyer with the schedule.

Scott Benner 48:30
That's not what's going to happen. Yes, it is. A friend of mine is actually a headshot artist, so he does an awesome job, and I'm going to go meet him very soon. He's going to take care of it for me. So thank you. I appreciate this was great of you. I really do appreciate your

Unknown Speaker 48:45
time. No problem. Take care. You too.

Scott Benner 48:55
Head now to tandem diabetes.com/juicebox and check out today's sponsor tandem diabetes care. I think you're going to find exactly what you're looking for at that link, including a way to sign up and get started with the tandem Moby system. The episode you just enjoyed was sponsored by the twist a ID system powered by tide pool if you want a commercially available insulin pump with twist loop that offers unmatched personalization and precision or peace of mind. You want, twist, twist.com/juicebox, having an easy to use and accurate blood glucose meter is just one click away. Contour, next.com/juicebox, that's right. Today's episode is sponsored by the contour next gen blood glucose meter. Hey, thanks for listening all the way to the end. I really appreciate your loyalty and listenership. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox podcast. When I created the defining diabetes series, I picked. Lectured a dictionary in my mind to help you understand key terms that shape type one diabetes management. Along with Jenny Smith, who, of course, is an experienced diabetes educator, we break down concepts like basal, time and range, insulin on board and much more. This series must have 70 short episodes in it. We have to take the jargon out of the jargon so that you can focus on what really matters, living confidently and staying healthy. You can't do these things if you don't know what they mean. Go get your diabetes to find Juicebox podcast.com, go up in the menu and click on series, Hey kids, listen up. You've made it to the end of the podcast. You must have enjoyed it. You know what else you might enjoy? The private Facebook group for the Juicebox podcast. I know you're thinking, uh, Facebook, Scott, please. But no. Beautiful group, wonderful people, a fantastic community. Juicebox podcast. Type one diabetes on Facebook. Of course, if you have type two, are you touched by diabetes in any way? You're absolutely welcome. It's a private group, so you'll have to answer a couple of questions before you come in, but make sure you're not a body. Not a bot or an evildoer. Then you're on your way. You'll be part of the family. The episode you just heard was professionally edited by wrong way recording, wrong wayrecording.com,

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